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Podcast Episodes

The Juicebox Podcast is from the writer of the popular diabetes parenting blog Arden's Day and the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad'. Hosted by Scott Benner, the show features intimate conversations of living and parenting with type I diabetes.

Filtering by Category: Juicebox Podcast

#1353 Carol Brady Wouldn't Understand

Scott Benner

'Gertie' has type 1 as does her son; and did her father.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, welcome back to another episode of The juicebox podcast.

We are calling today's guest Gertie. She's 41 years old. She's had type one diabetes for 23 years, and her 19 year old son has had it for 17 years. Her youngest son is 14 and also has type one diabetes. Her father had type one lung cancer and some problems that we'll talk about as the episode goes forward. Please don't forget that nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. Don't forget to save 40% off of your entire order@cozyearth.com All you have to do is use the offer code juicebox at checkout. That's juicebox at checkout to save 40 percent@cozyearth.com when you place your first order for ag one, with my link, you'll get five free travel packs and a free year supply of vitamin D drink. Ag one.com/juice, box. Don't forget, if you're a US resident who has type one, or is the caregiver of someone with type one, visit T 1d, exchange.org/juice, box right now and complete that survey. It will take you 10 minutes to complete the survey, and that effort alone will help to move type one diabetes research forward. It will cost you nothing to help. This episode of The juicebox podcast is sponsored by Medtronic diabetes, and later in this episode, we're going to be speaking with Heather, who will talk about the importance of education and understanding the impacts of hyperglycemia. Medtronic, diabetes.com/hyper. This show is sponsored today by the glucagon that my daughter carries, gvoke hypopen. Find out more at gvoke glucagon.com. Forward slash juicebox. Today's podcast is sponsored by us Med, usmed.com/juice box. You can get your diabetes supplies from the same place that we do. And I'm talking about Dexcom, libre, OmniPod, tandem, and so much more. US med.com/juice, box, or call 888721151,

"Gertie" 2:20
I am dirty, and I live in the middle of the desert,

Scott Benner 2:26
and it's dirty. You live in the middle of a dirty desert, so gross. You mean like dusty. There's

"Gertie" 2:35
so much dust. No matter how many times I sleep and mop and dust, it's just dirty.

Scott Benner 2:41
Have you considered leaving no not for a few years?

"Gertie" 2:47
I do, but I want to wait until my recent high school graduate son is settled before I leave

Scott Benner 2:55
I see okay? 41 Oh, congratulations. Nice age. Not sure about that. Let's see what you're not sure about what don't you like about it so far?

"Gertie" 3:06
The lack of metabolism thing, it's like dying.

Scott Benner 3:14
I'm with you on that. I are. You have any creaky joints yet?

"Gertie" 3:18
Or my hips when I was born were slightly rotated, so they're like crooked, and so the heat helps, but I can't sleep if it's warm. So it has to be icy cold,

Scott Benner 3:31
and they ache. So living in the heat helps your hips, but you can't sleep in the heat. It is.

Unknown Speaker 3:42
Do you have type one?

"Gertie" 3:43
My recent high school graduate has type one, and then my younger son, who hates me, has type one.

Scott Benner 3:54
Why does he hate you? Because

"Gertie" 3:56
we have differences of opinions. He thinks that he should be allowed to do whatever he wants, and I have rules at my house. So he's with his dad, because dad has no rules.

Scott Benner 4:09
He moved out. He is 14,

"Gertie" 4:10
and he was only with me for a year while his he's always lived with his dad. He's a daddy's boy, but I've always been, you know, an active part in his life, but he didn't like the rules, and so he went back to his staff.

Scott Benner 4:26
Gotcha is living in the desert like watching rango? Yeah, it is. I was pretty sure that's what it was. So wait a minute. So you have other type one, obviously your kids, but how about in the extended family? Do you see type one or other autoimmune on

"Gertie" 4:44
my biological mother's side? We don't know anything about my dad's biological dad and his family, so as far as we know, I'm the first i. But my dad did develop type one a couple of years ago

Scott Benner 5:06
and ultimately died from it. What is he was 6263 well, how does that kill in a couple he just didn't take care of himself like

"Gertie" 5:19
I flew out there for three weeks. I shared all the information. I called him all the time. I followed his Dexcom. He just didn't care. But also, my dad was a meth addict. Oh, the methyl.

Scott Benner 5:33
Oh yeah, a little bit,

but he beat lung cancer. But lung cancer didn't need insulin. How do you beat lung cancer? Maybe the meth helped. I think

"Gertie" 5:46
he lied to me about beating the lung cancer just to make me feel better, because despite his poor life choices, he was a wonderful father. He was very present, very active. Father daughter dates, chaperone field trips, all the conferences at school. Was at my track meet. Father daughter, work days. I mean, he was very, very present in my life.

Scott Benner 6:04
Yeah, Curti, are you trying to tell me that you think that your dad had no

"Gertie" 6:09
my dad was diagnosed with lung cancer,

Scott Benner 6:13
right? But I'm saying never really beat lung cancer and told you he did so that you wouldn't worry about him. Did he know that? You knew he did meth? Interesting and but once he got type one diabetes, a thing you have, he let it kill I don't

"Gertie" 6:30
think it was on purpose. I think he just thought that regardless, he would live forever,

Scott Benner 6:36
because meth and cancer, right? It's a rock solid, you know what? You can't, you really can't fall.

Unknown Speaker 6:43
I mean,

Scott Benner 6:48
he's dumb, he's he's gone. Now we're gonna, we're gonna be respectful, but, but I'm saying if, like, if you feel like cancer didn't get you, you use meth and it doesn't kill you. When someone goes sugar in, your blood's a little too high, you're probably whatever, yeah,

"Gertie" 7:02
probably like what he thought he's gonna live forever?

Scott Benner 7:07
Yeah, I'm sorry. How long ago died

"Gertie" 7:09
on my birthday last year?

Scott Benner 7:13
Jesus Christ. Do you think he did that on purpose? No,

"Gertie" 7:16
I'm gonna wait three more days. Fell asleep thinking I'm gonna call my daughter in the morning with my normal birthday shenanigans, and it's going to be great. And he just didn't, and he fell asleep thinking about me.

Scott Benner 7:31
Was he using drugs when you lived

"Gertie" 7:33
with him? No, that that started later in life.

Scott Benner 7:37
He's a late in life. Isn't that bizarre. I mean, it sounds bizarre. Bizarre. I feel like we're never getting to your diabetes. Sorry.

"Gertie" 7:46
He was so present in my life and such a good dad.

Scott Benner 7:51
Even. Do you ever talk about it with him? Like, Hey, Dad, I noticed you're doing meth. What's that about?

"Gertie" 8:00
How I felt about it, and I said,

Scott Benner 8:04
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"Gertie" 9:15
He said, It's not a reflection on me, it's a reflection on you. It's your choice. I don't approve. I know you want to move here to be closer to me, because he lived in Washington. I said that you can't while you're using that. I don't want you around my kids. My kids will not tolerate it. Washington

Scott Benner 9:30
State, yes, upper north. I gotcha think people who live there like, What do you mean by that? I don't. I don't really mean anything by I'm just around so, wow, that's crazy. How about your mom?

"Gertie" 9:43
I don't have anything to do with her. Okay, she is that crazy. Oh, I

Scott Benner 9:48
see, yes. All right, fair enough. I was like, hoping you'd say something like, Oh, she's the CEO of Oscar de la Renta.

"Gertie" 9:56
Wouldn't that be great? No, my partner's mom. Mom and my ex husband mom are my moms. They're they're my moms.

Scott Benner 10:05
What's the implications on you growing up with BET crazy mom,

"Gertie" 10:09
I have complex PTSD. I have severe anxiety. I don't do people because I don't trust them, because I couldn't trust her.

Scott Benner 10:20
You know all this, but it's, it's not something you can can impact. I chose to be a better parent. Okay, well, what about for you personally, though, like, like, you know, wouldn't it be nice to trust somebody?

"Gertie" 10:33
I have a few select people in my life that I can trust, but I'm very, very cautious about who I let into my life. Fair enough.

Scott Benner 10:44
How come the dad thing didn't bother you? How come the crazy bothered you

"Gertie" 10:48
never lied to me? Okay, my mother lied so

Scott Benner 10:52
I'll tell you right now. We should stop the episode. Eight minutes and 42 seconds. There's your lesson for today. Doesn't matter what your truth is. Be honest with the people you love,

"Gertie" 11:01
right? Yes, exactly. Just tell the truth, right?

Scott Benner 11:05
Yeah, not always going to be fun, not always going to be what you want to hear

"Gertie" 11:08
it. It sucked when my dad told me, but he was honest. He has been honest with me since I was as a child. He always made it age appropriate, but he never lied to me, right? That's interesting, and that made a huge difference in our relationship, versus my biological mother, who lied all the time. Right?

Scott Benner 11:28
You ever seek therapy for this? Or do you I have

"Gertie" 11:31
been in therapy off and on most of my life, and when my dad passed away, I went back to therapy because I couldn't handle it.

Scott Benner 11:38
Yeah, it's a lot. I want you to know that I recorded the like 30 seconds before you thought you were being recorded. It's you telling me you have ADHD, oh, that's fine. I almost responded then, but I wanted to wait until we got farther into the conversation to see how it would go. But in 10 minutes, I already have my answer. I'm genuinely and frequently fascinated that people who have ADHD tell me, I have ADHD, I'm going to be all over the place. And then when I talk to them, I don't find them to be that way. Oh, it'll happen, I'm sure, because it hasn't happened so far. You know that, right? Yes, yeah. Like you're on task,

"Gertie" 12:17
really hard on staying on topic, I can do it, but it sometimes I can't. Okay, like, I just saw the pink stapler, and think I hate that thing, but it works so well on stapling. No, no, it is terrible. Well, let's

Scott Benner 12:34
throw it out. You want to get a new one.

"Gertie" 12:37
We have a really, really good one, but my partner used it, and nobody knows what he did with it, because he didn't put it back. Well, this

Scott Benner 12:44
is his problem. He has to find it or replace it. He doesn't live with us. Well, wait a minute, then go to his house, it's probably there, and take your pink stapler and swap them. That would be fun, right? Yeah? Be like, here. You take the shitty pink stapler. I'm gonna take the good one. What's the good one? Is this swing line. They make a nice stapler.

"Gertie" 13:03
I don't know it. It came from Sears. That's all I know. Oh, no kidding, Sears, they

Scott Benner 13:07
still have a Sears. Or is that old? It's that old. No kidding, good for you. Yeah, Sears, yeah. But

"Gertie" 13:15
the feral cat got in my box spring, so I had to cover the bottom of my box spring, but I couldn't find the stapler, so we just bought this cheap one, and I couldn't use it. You

Scott Benner 13:25
paused. So interesting in box spring. You were like, my feral cat got in my box spring. And I was like, where is this going? But then I noticed you met your bed. So I was like, what is happening? Hey, tell people about the email you sent me the other day and why you sent it. Which email the one that you were like, I don't know if I can do this. Oh gosh,

"Gertie" 13:44
I have been dealing with cluster migraines for the last two months. So it's this nasty, vicious cycle where they hit, light, noise, sensitivity, nausea, vomiting, the most agonizing pain ever. They last anywhere from 15 minutes to three to four hours, and then, like, I have a half an hour where I kind of feel like crap, but then I'm fine for a while, and then they hit again, and so if it hits, I have to go lay on my bathroom floor. Is that

Scott Benner 14:17
something you've talked obviously you've talked to a physician about, but how do you try to manage it? Or can you not?

"Gertie" 14:22
Um, well, I've been through like, four or five different migraine meds, and none of them work. My neurologist is booked out until February, so I'm seeing a new one next month. We are hoping that I can get the new migraine injection, because I am a perfect candidate for it, okay? And since you know diabetes perfectly capable of doing it myself.

Scott Benner 14:47
Is it a daily or a weekly?

"Gertie" 14:48
I'm not sure. I don't know much about it yet. I'll find out more at the neurology appointment next month, I think. But my primary also suggested that while Gabe piercings don't. Have any medical statistics saying that it works. She's had several patients that have done it, and it's helped. My cousin on my mom's side had it done, and she's had one migraine in like, two years, and she had it

Scott Benner 15:14
done. So I'm sorry. I feel like I misheard you had what done. My

"Gertie" 15:18
it's a date piercing, so it's part of the cartilage in your ear, okay, so getting it pierced somehow helps.

Scott Benner 15:26
What if you just cut your whole ear off, like Van Gogh? Do you think Van Gogh had migraines, maybe? Oh, wait a minute. Now, we're onto something, rewriting history with Scott. It's my new podcast. I like it, yay. Oh, wouldn't that be fun? That would be pick like big historical events and just making Henry the Eighth and make stuff up about it for an hour on podcast. That would be so fun. Gertie, I'm sorry, I just gotta sit up for a second. You're a layback episode. I laid way back in my chair to talk to you, but I'm just gonna make a note here. First of all, I want everybody hear me say this. Don't take my idea. Okay. Now the next idea is rewrite history podcast, I think is a great idea. I also have another idea for a podcast. It's called argue with Scott. Podcast, everything says podcast B, you just pick a topic and we argue about it for an hour. That could be fun. I think it's going to be. It's going to be great. These are my after type one diabetes ideas. I like that, yeah, because eventually I'm going to get, I don't know, don't you imagine one day I'm just going to wake up and go, I can't talk to another person with diabetes. I got to stop.

"Gertie" 16:38
I could see that, I could see that I honestly

Scott Benner 16:40
don't feel like that, but there I am trying to be prepared for the future. So there's arguing with Scott and rewriting history. Boy, those are, that

"Gertie" 16:49
is a great one. I would have so much fun with that

Scott Benner 16:52
one. Rewriting history with Scott. Yeah, we could just make I am obsessed

"Gertie" 16:56
with, like the War of the Roses and the tutor on our screen, so I could have a lot of fun with that one.

Scott Benner 17:05
I don't know how you guys order your diabetes supplies, like CGMS, pumps and testing equipment, but at our house, we use us Med, and I'm gonna walk you through the entire process right now. I'm looking at the email from us med. It says it's time to refill your prescription, dear Arden, please click the button below to place your next order. Then you click the button that was it. Two days later, I got this email, thank you for your order from us med. We wanted to let you know that your order and it gives you an order number was shipped via UPS ground. You can track your package at any time using the link below, and then there was a link, and then it showed up at our house. Now I'm going to walk you through the entire chain of events. On the 29th which was the Saturday I clicked on the email. On that Monday, the first I got an email that said the order had been sent four days later on the fifth the package arrived. If you can do it easier than that, you go get it. But if you can't, us, med.com/juice, box or call 888-721-1514, get started today with us. Med, get your diabetes supplies the same way we do. This episode is sponsored by Medtronic diabetes. Learn more about hyperglycemia at Medtronic diabetes.com/hyper

Speaker 1 18:29
Well, Hi, I'm Heather lackey. I am a wife and mom. I have two children that are seniors in high school, and I've had type one diabetes for 34 years. And I'm a dietitian and a diabetes educator. You know, I'm the Director of Global Medical Education. I lead a team of clinicians that are developing content. How

Scott Benner 18:51
do you feel when your blood sugar's high? Irritable, thirsty, hungry. What do you enjoy most about your job? See

Speaker 1 19:00
education working, see people thriving. That's kind of the fuel that feeds, you know, my fire.

Scott Benner 19:08
What would you like to see community members talk about more hyperglycemia

Speaker 1 19:12
is the critical thing, right? That leads to short term and long term complications. Hyperglycemia is the greatest unmet need in the treatment of diabetes currently, and I think that that's where technology can help

Scott Benner 19:27
if you're having trouble with hyperglycemia. And would like to talk to other people in the diabetes community. Check out the Medtronic champions hashtag, or go to Medtronic diabetes.com/hyper What about I heard where we just have someone come on to talk about something they don't know a goddamn thing about, oh, that

"Gertie" 19:44
would be fun too,

Scott Benner 19:46
but they've heard stuff about, oh,

"Gertie" 19:47
could we put my partner on that one?

Scott Benner 19:49
I'm sure there's gonna be a never ending line to people to be on that one. Oh, that one. I'm watching it play out in the Facebook group today as I put up episode 1230 he says. And. Isn't sure about the number, yeah, 1230 it's this 58 year old guy had type one for eight years. They put him on Manjaro a couple years ago, and he's completely off insulin. And so he comes on to tell his story, and, you know, like, and he was very kind, and he said, If you want to, you know, put up a post in the private group, I'd be happy to stop by and try to answer questions. So this post has been up for about an hour and a half now. It's already reached 14,000 of the members of the of the group. It's got 171 comments. Most of them are just people who are like, I would like to understand this guy's story, which is really what we're looking for. We're not saying, Yeah, you know, obviously no one's saying, Manjaro, like cures type one diabetes. That's not the case. No one's saying that, etc. But once in a while, someone will pop in and say the craziest thing, like, there's a picture along with the post, and the picture is clearly AI created, right? I went into into chat GPT four. Oh, and I said, 50 year old man. Like, give me a picture of a 50 year old man with diabetes. Man with diabetes, and it basically takes and makes a man sitting in his room, and there's a meter on his table. It's it. And a woman comes into the group and says, Well, this man has gray hair, so obviously he's type two.

"Gertie" 21:18
Oh, my goodness, great. Would it

Scott Benner 21:20
be to have her on the podcast and say, Okay, let's start here. People with gray hair don't have type one diabetes, you've heard, right? And then just start. And then, then, like, on this episode of I heard, like, you know what? I mean, it's a great idea. Also, I had another episode. I had another podcast idea for a series with Arden, but I couldn't get her to do it with me. Oh no. I was gonna call it I don't understand. And then I was gonna have her come on and pick a different thing every episode that she didn't understand, and we were gonna talk about together and learn about it.

"Gertie" 21:55
Well, I can give you an I don't understand from my perspective. Go ahead, 19 year old swags. It does a count carb, nothing, just swags. It Dexcom g6 and he maintains a 6.0 A, 1c, well, I

Scott Benner 22:11
mean, Arden doesn't count carbs. So, oh, hey,

"Gertie" 22:15
so it's a thing. Yeah, a lot of people don't

Scott Benner 22:17
count carbs after they've had diabetes for a while. How long have you had type one.

"Gertie" 22:20
I was diagnosed right after my 18th birthday. He was diagnosed right before his second birthday. So you've

Scott Benner 22:28
had it for 23 years. He's had it

"Gertie" 22:33
for 16 July. Okay,

Scott Benner 22:36
let's not, you know, be so specific, yeah. I

"Gertie" 22:38
mean, look over his full management around 10.

Scott Benner 22:43
Is he managing better than you were when you were helping him? Yeah,

"Gertie" 22:46
honestly, he is the way he does. It totally works for him.

Scott Benner 22:52
Have you ever tried to ask him to show you like, like how

"Gertie" 22:56
just doesn't make sense to me.

Scott Benner 22:59
So the way I think about it is, like historical knowledge, like you look at food and say, Okay, I've eaten something like this previously. It took about four units of insulin, so I'm gonna bolus four units of insulin for it. Is that not like sensible to you?

"Gertie" 23:18
I mean, it is, but my brain doesn't think that way. How do it think? It thinks you must count carbs if you're going to eat them, like it's been so ingrained in my head that you have to count carbs. Oh, okay, I don't count carbs, but that's because I don't eat carbs. I am a low carb or high protein,

Scott Benner 23:39
but you still any carbs you have, you're covering,

"Gertie" 23:42
yeah, but it's minimal insulin, so I don't have to worry about the risk of severe lows, like, sometimes the foods he eats, he's taking 1520 units. And I'm just like, oh my gosh, you're gonna die. So

Scott Benner 23:55
this is interesting. Let us dig into this. Also. I'm gonna keep my notes here. I don't understand. I heard these are, these might be good starting points for conversations you've had type one for a long time. You were diagnosed at not a real young age, but a young enough age, at a time where everything was counting carbs, yeah, for good.

"Gertie" 24:17
I mean, even with new foods, he tries, he just swags it and nails it.

Scott Benner 24:23
But I'm trying to get to why. I want to shine a light on where you're at so point, I think the point is, I've talked to a lot of people, so I'm going to make some generalizations here. You tell me if I'm right or wrong, right. So they beat it into your head about counting carbs. You do that. Things don't go particularly well for you as far as outcomes, and eventually you transition to low carb. Is that about what happened? Because

"Gertie" 24:44
counting carbs doesn't honestly work, ah, but that's what happened to you? Yeah, yeah. And then that's probably why my son doesn't count carbs.

Scott Benner 24:52
But then you get super low carb, and what are your outcomes? Like fabulous anyone sees in the fives or. Fives, right? How many carbs a day? Less than 15. Yes, okay. Are you super ripped? No, you don't have, like, a washboard abs or something like that. No, I'm

"Gertie" 25:11
actually kind of chunky.

Scott Benner 25:14
How do you feel about that? Are you like, god damn it, low carb? What happened?

"Gertie" 25:18
I didn't switch for, like, weight loss, I've lost weight but it wasn't about weight loss for me, it was about preventing the severe lows and the swings. For me, I have a freakishly weird body, so if I eat like, one piece of bread and dose for it, I shoot up to, like, 500

Scott Benner 25:40
so what if I said to you, I bet you I could make a bolus for you and your and bread wouldn't make you 500

"Gertie" 25:48
oh my gosh, that would be so great. I miss bread so much. Okay, well, I love to bake homemade bread. Well, that's a lost art in your life, though, right? Oh yeah, from scratch. No bread maker. Oh, fancy, yes.

Speaker 2 26:03
I It's, do you cook it outside on an Adobe? No, I wish

"Gertie" 26:09
I did try it in the air fryer once. That didn't work out so well, really, how would that? Yeah, my oven decided it didn't want to work one night. So you tried that? Yeah, it did not cook in the middle

Scott Benner 26:21
Gertie. I can't believe I got Adobe off the top of my head. That was fabulous. I was really impressed with myself. Because I'm like, I'm impressed with that one too, because I was like, she said, desert. I'll make a joke here. What are those little domy ovens called? And I just plucked that out of the sky like, after I said it. I thought I'm probably wrong with that, but I was right. Oh,

"Gertie" 26:40
you, you got it right? That's That was impressive. Not bad.

Scott Benner 26:43
No, no, I'm gonna, I'm gonna live off that joy for at least 20 minutes, just so you all know how it works. That's good. That's good because I do Adobe oven. You think people right now are like Adobe's Photoshop. What are we talking about right now? So you would like to eat carbs, but you don't, because this is the only thing you found that you can kind of manage your health with. It

"Gertie" 27:05
works. Oh, it definitely, I think the only carb I would go back to eating is bread. Occasionally. I also don't like the way it makes me feel. I get really lethargic and I just kind of feel up, which was another reason for, like, giving them up.

Scott Benner 27:21
Do you have that crazy low carb energy? I do, yeah, like, super, like, focused, like, that kind of vibe.

"Gertie" 27:30
I don't do focus real well, but I have lots of energy. And then throw in my bipolar disorder. So when I'm like, in a manic high, I irritate myself. Are

Scott Benner 27:42
you telling me that one half of your brain irritates the other half of your brain? So what you're trying to say, Yes. Wasn't sure if you were making bipolar humor or not, but it felt like that's what was happening.

"Gertie" 27:52
I am a train

Scott Benner 27:55
wreck because, you know, like, if I joke about it first, and people are like, he's very insensitive. She said she had bipolar disorder, and he made a joke. Really hard to offend me, no, but that's what you meant, right? Yeah, okay, yeah, no. So I have to be honest with you, I have been, as the Yiddish would say, sitting on spilkas for 24 minutes wondering if you were bipolar, because I am absolutely bipolar because of the cluster headaches and the ADHD and the drug addict father,

"Gertie" 28:24
I actually was. My mom's a drug addict too, but she I didn't mean

Scott Benner 28:27
to miss I'm sorry. I didn't mean to shortchange her.

"Gertie" 28:31
My parents were train wrecks too. I am the one that changed it all.

Scott Benner 28:35
So is her batch crazy clinical probably a lot of trauma

"Gertie" 28:39
from her childhood, and then my dad had similar trauma, so it's like this big vicious cycle, yeah, and my kids have some trauma. I was not the best parent at first, but I figured it out. Where did you go wrong in the beginning? Temper, lack of patience, discipline, I can definitely say that some of the discipline may have crossed the line when they were younger,

Scott Benner 29:05
like your socks don't match, so I just crack you in the mouth like that.

"Gertie" 29:08
No, no, no, I think I was harsher than it called for, okay, not physically, though, I spanked my 19 year old once and cried, and he was about four, he got a SWAT on the butt, and never again. Okay. Plus, it didn't work.

Scott Benner 29:28
If I found your ex, he's an ex, right? The guy who you're 14 year olds with, yes, yeah, if I found him and said, Hey, describe Gertie to me, what do you think he'd say horrible, horrible things because they're true or because he's lying.

"Gertie" 29:44
We have a very volatile relationship, and while I'm able to look past that and try and do it best for our child, he is stuck in the past and can't move forward so he

Scott Benner 29:57
remembers you the way you were. Yeah. Yeah, okay, I think that's common, by the way

"Gertie" 30:02
it is, and it's like, I'm not, I'm not that person anymore. Yeah, it's hard done a lot of growing and healing, and every day, I try to be a better version of myself, for myself and for my kids and for the people in my life, right?

Scott Benner 30:16
So I think this is so common, like, because you actually mentioned it earlier, right? Like, if you think about it, like the way you grew up, imprinted on you, and now you know, you know you're like, This isn't right. I shouldn't feel this way, but you can't stop yourself, and I don't know that that's so different from I was with you when you were like this, and now you're not like that anymore, but this is how you've imprinted on me, so this is how I feel about you,

"Gertie" 30:44
yeah, and that's that's what it is. My ex husband, my older two boys, Dad and I are best friends. Best friend. He's my go to and I'm his go to. Gotcha like we have traveled to visit him. I stay at his house. We do stuff together, we talk almost daily. He was able to look past the person I was when we were together and see who I am today. That

Scott Benner 31:14
makes sense. And so that's my best friend. Nice. So you use medication for the cluster headaches you use doesn't work. It doesn't work. Use insulin. You're thinking about getting something in your ear pierced to try to, like, remove that a little bit. What do you take for the bipolar or anything?

"Gertie" 31:31
My official diagnosis just came along with the ADHD, so I'm not medicated yet. Okay.

Scott Benner 31:40
Is that something you're working towards?

"Gertie" 31:41
I think so. They have a gene testing now where they can tell you what medications will work best with your body. So I will do that before I start medication.

Scott Benner 31:56
How did that high fluten doctor and make it out to the desert?

"Gertie" 31:59
I don't know. I just asked my primary about it, and they knew,

Scott Benner 32:03
yeah, is the doctor's office dusty?

"Gertie" 32:06
It's not quite as deserty where her doctor's office is. So no, I drive an hour for my primary because she's the

Scott Benner 32:15
best. Let me ask you a question, are you driving very slow and it's close to your house? You're driving very fast and it's far away, or somewhere in between?

"Gertie" 32:22
I do the speed limit, okay? So the I get a little road Reggie when people in front of me go under the speed limit. So under is not okay. Overs is over better if you're in front of me. Yeah, I had

Scott Benner 32:34
a very bad day yesterday, and I went out for a fast drive to pump up my adrenaline, to try to kick

"Gertie" 32:39
out my gosh, I love going fast, but it's not my truck,

Scott Benner 32:44
so I follow the rules. I understand. Okay, so this place is about 60 miles from your house. Am I guessing right? Yeah, interesting. Yeah.

"Gertie" 32:50
You know how I figured out my endo is a three and a half hour drive, so I go in person once a year, and the rest is telehealth. Holy

Scott Benner 32:57
hell, how far in miles is that? Seriously?

Unknown Speaker 33:02
Sure? A lot, a

Scott Benner 33:03
lot. Yeah, is that just the best endo you can find? What makes you go that far to get to them?

"Gertie" 33:09
I tried the ones in my area that my insurance covered, and I could not handle them. This one asked me what my a, 1c, was, and what I what age I was diagnosed at, and decided, after 20 years that I was type two, oh, 140 miles. And so that was just a no. And then told me the high breakout on my chest was a thyroid problem.

Scott Benner 33:38
How is your TSH,

"Gertie" 33:39
normal?

Scott Benner 33:40
What's that mean? What's the number? Um, I

"Gertie" 33:42
don't have my lab work in front of me. It's okay.

Scott Benner 33:45
Sometimes they'll tell you it's normal. When it's high, is all I'm saying.

"Gertie" 33:48
Yeah, no, I have chronic hives. It's interesting because

Scott Benner 33:53
my son got, my son's only indicator for, like, outward indicator for Hashimotos was hives. I

"Gertie" 34:00
started getting hives, like, three days after my dad brought me home from the hospital. When I was born, it's been a lifelong condition for me. There's

Scott Benner 34:08
a biologic for that too, you know, yeah, because you're because the thing for the headaches, that's a biologic, right? Yep, yeah. Interesting, interesting. I have a question that has nothing to do with anything, but everything to do with this. Okay, when you're bipolar, how do you trust your reactions? Like, when your doctor says something to you and you're like this, ladies and idiot, how do you not go or maybe she's not self control. So how, what do you have to, like, go home and think about it later. Or, how do you how do you manage it? A

"Gertie" 34:41
lot of I call my ex husband or my grandma. I used to call my dad, but, yeah,

Scott Benner 34:49
no, I understand. So we so you'll call and say, Look, this happened. This is what they said. This is what my response was. Can you tell me if this is. Reasonable? Yes,

"Gertie" 35:01
that is what I do, because I can't always trust my reactions, so I have to get advice or validation from someone else to make sure that you know I'm not overreacting, underreacting.

Scott Benner 35:17
No, yeah, that's what I was wondering about. And if you and I, if I interviewed you every day for a month, would I eventually meet a person who's not at all like you are right now? Oh, absolutely. How would that conversation go? Would you like be combative?

"Gertie" 35:31
I could be yes, although I'm pretty good at maintaining control when I feel that way or I isolate myself because I'm not gonna upset everyone else because I have a chemical imbalance. How do you know to do that? If I catch myself getting snarky, I'm just like, Okay, guys, bye. I'll let all I'll come out when it's time, because

Scott Benner 35:56
you just know I'm gonna say something. Why do you care, though, if you're in that space, how come it's not more cartoonish, like in the movies? Like, seriously, like, why are you not like? Why do you just like, suddenly not

"Gertie" 36:07
care, and I don't want to be like my mother and hurt them

Scott Benner 36:11
I see was your mom clinically. You called her patch crazy earlier. Now it's just stuck in my head, but she doesn't have

"Gertie" 36:20
any official diagnosis, because she doesn't believe in it, but, but there is depression, I'm sure some anxiety, probably bipolar. Your kids do? They

Scott Benner 36:33
have any issues like this?

"Gertie" 36:34
My youngest son definitely needs an evaluation, which is part of the reason why he hates me, because I tried to have him evaluated, but my goal was to see if there was anything going on and to learn as much as I could so that I could be the best parent to him and give him what he needed from me. Yeah,

Scott Benner 36:58
but that's hard. I mean, you can see, right, like, if, if the same thing happened to you, do you think you'd have a similar response to his? I

"Gertie" 37:06
actually asked my dad, when I was living with him, if I could be admitted to be evaluated, and him and my stepmom, because back, you know, when I was a teenager, mental health wasn't a big thing. It was hush hush where we lived and that time, so it never happened, but I honestly wished my parents had because maybe

Scott Benner 37:36
I would have had better luck

"Gertie" 37:39
as I grew up, you know, better understanding of my mental health and what I needed to do so that I didn't lash out or do some of the things that I've done. Yeah, you

Scott Benner 37:51
might have been so far ahead of the curve on that that, who knows if the help would have helped or not.

"Gertie" 37:56
Hopefully, it would have. But, I mean, I can't go back and change it.

Scott Benner 37:59
Yeah, that's for sure, because if you could, you'd own a time machine, and we be rich, you and I, because I go to business with

"Gertie" 38:06
you, and you know, I probably wouldn't have my kids. And even though my 14 year old's kind of rotten, he's my kid, and I adore him when he's being nice. Can you be kind of rotten sometimes? Yeah, but when I noticed myself being rotten, I tell my family, I'm i I'm agitated, irritable, snarky. I'm gonna go in my room and stay there until it passes.

Scott Benner 38:26
Maybe he'll learn that over time. I hope so. Yeah, I mean, 14 is a little early to figure that out.

"Gertie" 38:31
My 19 year old type one he when we first moved down here, he had a lot of anger issues about it, and so I decided that we would do therapy so that we could communicate with each other and learn how to communicate with each other. And it was amazing. It helped so much.

Scott Benner 38:53
It's lovely that you're doing this for your kids when you know

"Gertie" 38:56
I want to be better than my mother was. It sounds like you've done that. I think that I have. I think I've done a good job with my boys. Is that fulfilling it is? It really is like when I got to watch my recent graduate graduate, I was a sobbing mess. I mean, I never in a million years thought that that was that I would be able to get my children through school and be able to support them and help them make it happen. Hit

Scott Benner 39:26
a milestone like that in a happy, expected way.

"Gertie" 39:30
Yeah, I I mean, and my oldest son is getting his GED. He's got a pretty decent part time job. He has some issues, like anxiety issues. So he doesn't work full time, but He's respectful, polite, a productive part of society, and so is my 19 year old. He is fabulous.

Scott Benner 39:52
Very nice. Look at you. Congratulations.

"Gertie" 39:55
Like other than that few months when we first moved down here, I've never. I had any issues with my oldest kids. Have you heard of senior assassin?

Scott Benner 40:04
Is it something like in the last couple weeks of school where you pick somebody and, like, pull a name out of a hat and you have to, like, pretend, kill them somehow? High School,

"Gertie" 40:13
it's kind of nationwide. You have teams of three or four. You get pool floaties for your arms and squirt guns, and your goal is to take out other teams, and it's a $500 pot at the end of it for the last team

Scott Benner 40:32
I have heard about this. Okay, so

"Gertie" 40:35
our school, our high school, participated in this, and I was sleeping, and my 14 year old was with me, so he comes and knocks on my door, and he goes, my brother got home, brought home by the police. And I'm thinking, What? No, not him, you maybe, but not him. So I'm thinking, this kid's messing with me. And I go open my front door, and my jaw hit the ground, because there's my son with the police officer, because the girl knew his group was coming to her house, told it them to bring it on. And then her parents saw, you know, four kids creeping around with sport guns and called the police.

Scott Benner 41:15
Well, that's not bad. That just sounds fun.

"Gertie" 41:18
My son was super, super respectful, listen to the officer and goes, you know, maybe, maybe nighttime was not a good time to do this. Like, you're right. This, this could be, yeah, it could be dangerous. Like, what if they had a gun and pulled it on me? And the officer's like, yeah, totally. So because of his respectful behavior, they just brought him home about that. Yeah, the officer left, and I'm like, walking through the house, if my son turns around, he's like, are you gonna yell at me? I'm trying really hard not to laugh, actually.

Scott Benner 41:50
Well, that's nice. I can't believe they let it. They let them call it senior assassin.

"Gertie" 41:54
It's not associated through the school districts. It's just something seniors do. They do, like, I don't know where it came from, but it's not through the school district. It's not associated with the schools at all. I know a lot

Scott Benner 42:05
of kids just quit in the middle of it. They're like, Oh, my God, $500 I can't go through this for all this time again. We have to split the money. I've heard people do it. They seem like they have fun.

"Gertie" 42:17
Thank you. I thought it sounded like a lot of fun when he told me about it,

Scott Benner 42:22
yeah, yeah, for sure, how long have you been low carb?

"Gertie" 42:26
Um, it's been a couple of years. Okay,

Scott Benner 42:29
and you said bread you'd want back. But like, let me just ask you, kind of like, this question, if your boluses went the way you wanted, if they went the way your sons do when he boluses for himself, would you change from low carb? Or would you just go, No, I like eating like this. I

"Gertie" 42:44
really like eating like this. I feel so much better. I have energy. When I'm not in a manic high, I sleep really good.

Scott Benner 42:54
It's valuable for you. It is, yeah,

"Gertie" 42:57
I do. I feel better. I have more energy. I still can't focus for the life of me, but I do, I feel better overall.

Scott Benner 43:04
That's excellent. I'm glad you passed on the work. So,

"Gertie" 43:06
like, who doesn't want to eat steak? Like, good steak.

Scott Benner 43:10
We did a low carb diet, I mean, years ago, to try to lose weight, a long time ago now, and it worked. Like, you know, I lost weight. I wasn't using insulin, so I don't know, you know, obviously, what impact it would have had on that. I found it unsustainable. After a while, kind of felt like I ran out of things to eat. Definitely. I mean, it definitely worked. And I think anything that people do that worked for them is fantastic. I just think that it's if I were to pluck you out of whatever year you were diagnosed and bring you forward to 2024 and say, Hey, you're diagnosed. Now you're a teenager. Here's a CGM and a pump that has an algorithm in it. I think you probably don't end up having the same experience.

"Gertie" 43:50
That's definitely true. When I was diagnosed, I didn't get a lot of education. No one even told me this was a lifelong condition. Oh, really. So I assumed that the files of insulin I got were like antibiotics. When you were done with them, you were better. No, no kidding. That's how my diagnosis went. Let me ask

Scott Benner 44:09
you another question before we started me, we made the decision to make you anonymous, because you said you didn't think people were gonna like you when this was over. But now we're 45 minutes into it, and I don't know what you were talking about. Well, because I

"Gertie" 44:21
have a I don't care that I have diabetes. I don't care that my kids have diabetes. It doesn't impact our life negatively, no matter what. Like a couple of years ago, I went grocery shopping with my partner's mom, and my son was 17 at the time, and we came home with fried chicken, and he, like, stumbled out, and I thought he had just woken up from a nap. Okay, no big deal. I don't hear his Dexcom screaming, so I watched him walk down the hallway, drop a piece of chicken and go into his room, and I'm like, Hmm, that's not right. Right? So I grabbed a glucagon and the meter that I keep on the bar in the kitchen and followed him, and he was having a seizure. So I'm like, prepping the glucagon, checking his finger. It just read low, stabbed him in the leg, made sure he didn't hurt himself. I read my book out loud, and he starts coming too, and he's like, What are you doing? And I'm like, you had a low, induced seizure. And he's like, I was sleeping. And I said, Well, what happened to your Dexcom? And so we get his phone because there were no alerts, yeah. And he goes, my phone is off. I'm like, do you think it's possible you turned it off while you were sleeping because it was beeping, and he goes, that's really rare, but I was pretty tired, and I'm like, okay,

Scott Benner 45:50
okay, but why would that make people not like you?

"Gertie" 45:52
Because I don't care that he had a seizure. I mean, there's nothing I can do to change it. It happened. We called this Endo, let her know we did a telehealth appointment. I'm not going to sit there and cry about it or be angry and nor is He. He's just going to go, Okay, what did I learn about this? So

Scott Benner 46:09
what I was going to say is this, I have a lot of experience talking to the public, and you can always find somebody who's going to find fault with anything that's true. You have to look at it as a whole and say, if there are, I don't know, 10,000 eyes on this statement, and three people are ranting and raving at me, then 9997 of them don't have problem with it, and that's true, yeah, and I don't, and so I don't, I don't make my decisions based on what one or two people say that's true, yeah, especially when it's so common. Just, it's just so human to have a knee jerk reaction to something, say the first thing that comes to mind, not really consider the implications of the entirety of perspective. And just say, like, like I said earlier, like, oh, that person has gray hair, so they must have type two diabetes. Like, well, if you sit down with that person, if I found that person, and I really sat and talked to them, and they were on my I heard podcast, and I was like, All right, today's topic is, I heard, if you have gray hair, you can't have type one diabetes. It has to be type two. And then I let them talk. And then an hour later, we get done, I'm sure they'd say, hey, you know you're right. I was just being bombastic or, like, you know, overly simplifying my thoughts. I obviously don't think that. And so I I wouldn't take and I also wasn't trying to prove her right or wrong. I just responded back, and I said to her, have you listened to the episode? I'd hate to think that this is like, devolved into us just, you know, making decisions based on an AI generated image, which is not of the person who's in the episode, or maybe AI is just so good now, like, I should be like, Wow, I can't believe nobody that she didn't notice that was not a real human being in that photo. I think if you could talk to her, she'd be okay. So, like, my point is, is that you have not said one thing that I think people find objectionable. Now, can we find somebody to be upset? Go ahead, ask your question. I'm only here.

"Gertie" 48:14
Why do people carry all of their diabetes supplies, like including the kitchen sink? Everybody carries so much stuff and don't understand it. What's a rapid acting pen? Close packs, and there's a glucose meter in my truck. That's it. Okay. Do

Scott Benner 48:29
you have glucagon with you?

"Gertie" 48:31
I think there's a G vo in the truck. There

Scott Benner 48:33
you go. Hypo pen they I'm assuming you're not supposed to store it at that temperature. And I probably signed something that says, I'm gonna say that out loud, but I

"Gertie" 48:42
think so too, okay, which is why I'm not 100% sure if it's in the truck.

Scott Benner 48:47
So you carry low snacks, a meter, a pen, glucose.

"Gertie" 48:52
I use the tandem pump. Well, normally,

Scott Benner 48:55
you see people carrying around, though, that you're questioning, but like people with

"Gertie" 48:59
they like carry extra cartridges and the infusion sites, and they carry the glucose meter, and they carry this that, and they all make these four kids carry these backpacks with all the like sling bags or fanny packs.

Scott Benner 49:13
You think little kids are walking around with extra sites.

"Gertie" 49:16
I've seen it posted before in some groups, so

Scott Benner 49:19
then, don't you think what you're actually seeing? Listen, I don't want to be reductive, because I think you should do whatever you think is right. But don't you think that sometimes just some type a people are so proud of how they've type a coordinated everything in the end of their type A experience is to take a beautiful photograph of it and share it with other people. Well, I

"Gertie" 49:40
guess, but I just feel bad for the kids that have to carry that around.

Scott Benner 49:45
Those people are listening right now and they're like, I feel bad for you because you were like, you know, you had your own implications in life, too. Yeah, yeah.

"Gertie" 49:53
I mean, I just, I don't know. I never made my son carry all that stuff.

Scott Benner 49:58
Listen I hear what you're saying. My. My kid rolls around most of the time with actually, at this point now she's using trio, the app, the do it yourself algorithm. So she's got her phone, which is, of course, it has the app on it for the the algorithm. It also has an app on it for Dexcom. And so there's a phone. She has glucagon with her. She has test strips a meter. She has the contour next gen meter with her test strips, juicebox, and that's it. Now, here's but here's the wrong it's all she needs. She will carry

"Gertie" 50:38
like Dexcom extra OmniPods. And it's like, you know, if you're still using the g6 you still have the two hour warm up, plus you have to stop what you're doing and go change it, and you still have to poke your finger in that two hour time period. Like we went to Magic Mountain and my son's OmniPod fell off. Okay, so I have a rapid acting pen in my little cell phone case. That is all I take.

Scott Benner 51:06
So you had a backup, though, those people wouldn't have,

"Gertie" 51:09
I have a backup. We always have a rapid acting pen with us, but if you feel the need to carry, you know, extra sites, yeah,

Scott Benner 51:16
no, this is specific to your situation. But what I was going to say is that, you know, if Arden leaves in a car, she can get back in a car, but if she leaves and she goes more than, like 30 minutes away or somewhere where we're gonna spend it like, if we were gonna drive the half an hour to my mother in law's house and swim for the day, we'd bring insulin and extra stuff with us.

"Gertie" 51:39
Cassie, I wouldn't. I would just have the glucose meter and the pen and pen needles,

Scott Benner 51:43
that's it. But the pen is, is extra insulin. Well,

"Gertie" 51:47
it is. Or I could carry syringes and just pull it from the pod or the tandem cartridge, yeah. But also, you could just carry, also, oh, you know what we do, keep a package of syringes in the truck too.

Scott Benner 51:57
I see you're arguing against yourself now,

"Gertie" 51:59
so I am arguing against myself. I just don't see the point of carrying extra Dexcom and pod sites, even if you're going to be gone all

Scott Benner 52:06
day. So Arden went to New York City recently.

"Gertie" 52:09
I would take extra supplies if I were leaving town, okay, for like, more than a day.

Scott Benner 52:13
So you're saying I wouldn't take an extra Dexcom with me if I was going to the grocery store. Well, I mean, I wouldn't either.

"Gertie" 52:22
I'm just saying, that's what you're saying, right? My grocery the grocery stores we use are, like, we do use fries here in town, but a lot of times we'll go elsewhere. So I live way outside of, like, the main city. I live in a little town, so most everything is over an hour away, but I don't take anything with me. So if you so you could be going to take a Dexcom. I went and spent the night with my cousin when she visited over an hour away. I didn't even bring an extra pump site. I think I had a full cartridge. So I just threw some syringes and a glucose meter in there and blow snacks. That was it. That's all I got. But use a pen. You have a pen with you. I did not have a pen because it was empty. Okay. So

Scott Benner 53:03
what if, at 247, in the morning, you would have woke up had no insulin delivery and no pen? Well, I had syringes with me to pull it out of the pump. Yep. So, I mean, I always, always have a backup. What's the difference between carrying syringes and going through the mishegoss, of pulling it out of the pump or just bringing a pump and an insulin with you? What's the difference?

"Gertie" 53:29
Because it's less to put in my purse and less to carry, not,

Scott Benner 53:33
I mean, I mean, Arden has an OmniPod, so it's this little square package. It's only about maybe three quarters of an inch thick, and maybe, I don't know, three inches square, and then Insulin is the size of my pinky, so I don't know, is there really that much difference? It's not like I'm bringing a brick and you're bringing a feather. You know what I mean? This feels like a thing. You're twisted up

"Gertie" 53:58
about doing stuff during the day. I don't want to stop what I'm doing to change my pump or my Dexcom I want to just get my insulin and go, here's

Scott Benner 54:07
the OP. Here's the alternative to that idea. If you're out trying to enjoy your day and you had an insulin pump or Dexcom fail, I'd want you to get it back on immediately so you could go back to enjoying your day. But

"Gertie" 54:20
I would enjoy my damn old day all the same with just using my pen and meter right? So now

Scott Benner 54:25
that we have both given birth to the idea that my idea and your idea makes each of us happy, why does it matter what you see other people do online?

"Gertie" 54:36
I don't know. It's none of my business, honestly, but it's something that like, we brought it up and that I know, but I, like, hyper fixate on it sometimes. Yeah, I mean, that sounds like none of my business, and I'm not judging them. I just, I want to understand.

Scott Benner 54:53
Let me stop. You're not judging them. I don't mean to judge that, okay, but you don't understand. But I've explained. It to you, and every time I've explained it to you, you've argued with

"Gertie" 55:02
me. I'm argumentative. I mean, I guess I understand, but it just

Scott Benner 55:06
is this how argue with Scott would go, this is fantastic. Oh, I like it. I really do enjoy this. Yes,

"Gertie" 55:12
I guess what I think is I just feel bad for those kids that have to carry all those extra supplies, like when you can just throw a meter, I

Scott Benner 55:21
hear what you're saying, and what I'm telling you is I could go find 100 people who would say, I feel sorry for all those kids that don't carry extra supplies and have to draw insulin out of their pump with a syringe all day because their mom just wouldn't bring a pump with

"Gertie" 55:33
them. My My kids don't care. They find they prefer just either having extra syringes in their pocket. Well, they usually use a pen,

Scott Benner 55:42
yeah, but you taught them that. That's why they prefer it

"Gertie" 55:46
well, and I've asked them if they want they carry extra supplies. My older type one has no desire to. He cannot wait for the OmniPod five app on his iPhone. He will be so excited, absolutely. Yeah, no, that will be just bought himself a new iPhone. So it's even more up. Is he using Dexcom g6 or g7 Yes, he's using the g6 Okay, he has seen my struggles with the g7 and it's like no ball weight, all right. So two

Scott Benner 56:10
things, Arden has g7 it's fantastic. There's no struggles with it. By ass, my issue is they don't stay on. Don't have a problem with that. Although I live in the desert. I sweat my point of saying this was I was going to give you some inside information. If what he cares about is the iPhone app or OmniPod five, stay on the g6 for now. He has no desire to switch. All right, let me just say I can't tell you why, but do that for now. Now keep in mind that we're recording in June of 2024 it could be completely different by the time this comes out, but you right now, don't, don't switch from the g6 Okay, okay.

"Gertie" 56:49
I used tandem, so I switched. But yeah,

Scott Benner 56:53
no, listen, are you not using the Dexcom overlay? Is that not working for you?

"Gertie" 56:57
No, I order them from Amazon with our HSA card. So I use right care or skin grip for them, okay, because they don't aggravate my skin nice and skin tack. I use a grip shield from Deck my diabetes. But you're only supposed to put them on your arms, and that does not work for

Scott Benner 57:17
me. So they're not falling off because you're putting overlays on them.

"Gertie" 57:20
I sweat them off. Yes,

Scott Benner 57:25
dear Lord, how much are you sweating? I'm a sweater. It's really gross. That's a great quote. If I did social media around my episodes, I would definitely have you going, I'm a sweater. It's really gross. And then it would be like, check out more with Gertie at episode. I just have time for that, so I don't do it. Yeah, so

"Gertie" 57:45
I don't use them on my arm. I use them on my thighs. My stomach is really inaccurate, so I don't use my stomach.

Oh No kidding. And then I've had two fail recently.

I would get sensor error, and then just fail. And I drink 128 plus ounces of water a day, if not more. We

Scott Benner 58:07
bailed on a g7 day eight and a half this week. I remember saying to Arden, something's funky with that sensor, like earlier in the day. And then we tested and it was reporting much higher than she was. And I was like, oh, and I don't think you should try to ride this one, like, because usually she doesn't have this problem. So I'm just like, just get rid of this one. And she was doing the like, I don't know, man, I don't feel like, change that whole thing was happening. And then I went upstairs and I heard dad, and I'm like, Yeah. And I look back downstairs, and she goes, my sensor just errored. And I was like, Ha, but that's the first g7 that's errored on her since she started and and hasn't made it 10 days. And she's literally been on it since, like, day one.

"Gertie" 58:53
My first four were awful. Okay, the first one wouldn't connect with my pump. So I called tandem. They had me walk through the process. It didn't work, so I pulled it, I put the next one on with my overlay, and I woke up the next morning and it was attached to one of my blankets, the next one I hit on my bedside table.

Scott Benner 59:19
But, but, I mean, that's not a

"Gertie" 59:21
Dexcom problem. No, no. And that was a total. That was a total. Me, I'm a klutz, but it didn't lift or raise or come loose that you could tell. So I was like, Okay, fine. And then, like, an hour later, sensor failed. I'm like, What? What is this? How it's perfectly fine.

Scott Benner 59:39
See, the way I see it is that thing had some sort of a problem, and it did what it was supposed to do and shut off so it wouldn't give you inaccurate ratings,

"Gertie" 59:47
see, and that's nice, but I guess Dexcom has this new thing where you only get three a year when they fail. Yeah,

Scott Benner 59:54
I bet you, if you complain a little bit, that doesn't really happen.

"Gertie" 59:57
Yeah, I I've only heard it. I. Never experienced it, because I just had the call to in for failed. My

Scott Benner 1:00:04
expectation would be, is that there are some people who are foolish and trying to rip off Dexcom, and they're probably trying to, like, find a balance between that.

"Gertie" 1:00:14
And that's totally understandable. I would get it. I would totally understand it.

Scott Benner 1:00:19
Have you heard this saying one bad apple ruins the whole bunch? Yes, yes, right, right. That's, this is what happens when people are, you know, blah, blah, blah.

"Gertie" 1:00:28
I maybe had to call in one g6 a year.

Scott Benner 1:00:31
Okay, yeah. I mean, I'm being 100% honest. Like, Arden does not have problem with g7 she didn't have problem with g6 like, she's one of those people. Like, tell me her secret. She sticks it on and pushes the button. Nothing else. She pays no attention to it. But I do. She uses the overlay that comes with the g7 that's it. I've never, like, you just talked about, like, all these different companies for like, I've never bought an overlay patch in my

"Gertie" 1:00:54
life, really, if I don't, they just fall off into these. You're

Scott Benner 1:00:57
disgustingly sweating. I'm

"Gertie" 1:00:59
a sweater. I'm a disgusting sweater. Yeah, exactly. My son can wear his g6 and no overlay, no skin tack, no nothing. And they will ask,

Scott Benner 1:01:07
yeah, he's not a horribly disgusting person like you are. He is not

"Gertie" 1:01:11
and, well, he showers like twice a day, though I would think that, you know, twice a day for 10 days. The 14 year old. No, my, my 19 year old. The 19 year old, okay, he's gonna say the 14 that kid is obsessed with personal hygiene. Nice. He has a whole freaking skincare routine. Oh,

Scott Benner 1:01:28
a lot of young people do that. My daughter's always up my ass. She's like, you're not taking care of your skin. That's why you have wrinkles. I was like, what am I trying to look good for? Exactly,

"Gertie" 1:01:37
right? Well, I've had cystic acne my entire life. So it's, like, excruciatingly painful. So like, my son gave me some pointers, and I haven't had a cystic pimple since, like, September. Oh, he knows what he's doing, yeah. And it can be overwhelming and frustrating because ADHD and anxiety, yeah, but I do it because the state acne is so painful. Sucks.

Scott Benner 1:02:07
Yeah, I'm sorry. I've Arden's had a ton of luck getting rid of her acne since she's been on a GLP medication. My insurance won't cover it. Yeah, it sucks. For the next couple years there's going to be dodgy insurance that won't cover stuff. Yeah, more studies will come. They'll, you know, probably get better coverage as time passes. I don't know this

"Gertie" 1:02:27
skincare routine works for me. He helped me tweak it for my skin needs. And yeah, no more acne. She

Scott Benner 1:02:32
tried so hard with all that for so long, and just nothing ever really, you know, bore fruit for her. Girl. Acne is so horrible, she definitely didn't like it. I have a question. It's a weird question to ask an hour into it as we're getting ready to stop. But why did you come on the podcast? You wanted something new? Well, this was new. You did it. Yeah, good for you. Looking back on it now and we're not going to change. So don't feel weird. But did you need to be anonymous? Maybe not. Okay, that's all.

"Gertie" 1:03:02
But I'm also a very private person, so I think I preferred anonymous regardless.

Speaker 3 1:03:07
Yeah, no, it's fine. It's absolutely fine. I have no trouble with it all. I was just asking the question. Okay, so here's where I ask you, is there anything we haven't talked about that we should have? Why do people panic in general? Well, like, if you have the lows. I don't understand the panic. Have you ever had a seizure? I

"Gertie" 1:03:26
have not, but my son has had, my older one has had three, right,

Scott Benner 1:03:31
panicky. Do you want it?

"Gertie" 1:03:33
Well, it bothered me, but I mean, panicking wasn't going to help the situation. In fact, it could have made it worse. So I just

Scott Benner 1:03:40
handled it, I would say, why would someone panic in a scary situation when staying calm is more valuable? Exactly? Would be like saying, why don't you not have bipolar disorder? They're not panicking on purpose, is my point. Well,

"Gertie" 1:03:57
like I said, I think that my trauma from my childhood is why I just don't react with panic. I don't panic over anything. Even when I tried to cut my finger off a couple of weeks ago, it was just like, Oh, look at that part. Really hurt.

Scott Benner 1:04:08
Two things, first of all, we'll get back to that. But the first thing is, yeah, that's a good point. Is that when your mom is mentally ill and addicted and your dad's addicted, and this is happening, and that's happening, a seizure probably doesn't even register in the top 10 worst things you've ever seen in your life. No, it doesn't right, but that's why they're panicking and you're not. They're living a fairly normal life where a seizure is a horrible thing, and you're living a life where a seizure is number 38 on the things that might happen to me today list.

"Gertie" 1:04:38
Okay, that makes sense. Okay. And

Scott Benner 1:04:40
what about your finger?

"Gertie" 1:04:44
My pork sausage was still partially frozen, so I was using a knife to, like, cut it up into smaller pieces and tried to cut my finger off. Oh,

Scott Benner 1:04:55
my God, when my wife uses a knife, we're all like, please be careful. Oh. Oh yeah.

"Gertie" 1:05:01
I think I have a little trauma from that, because I really don't use my knives right now.

Scott Benner 1:05:05
Did the sharp part hit your finger?

"Gertie" 1:05:07
Oh yeah, I got it all the way to bone. Oh, my

Scott Benner 1:05:10
God. Don't say stuff like that. Uh, that gave me the heebie jeebies. Jesus. Could

"Gertie" 1:05:16
I tell you there was blood all over my kitchen?

Scott Benner 1:05:18
Can I ask a serious question, What did you eat the sausage? Still,

"Gertie" 1:05:23
I did not.

Scott Benner 1:05:24
I don't eat spaghetti. Wait, wait, you were cutting it up. Oh, it was for someone else.

"Gertie" 1:05:29
I make spaghetti for my bonus son because it's like one of his favorite meals, and he had a friend over and requested spaghetti, so I was making spaghetti.

Scott Benner 1:05:37
Wait, had bonus son. Sounds like a kid who walked in off the street and you didn't make him leave. It

"Gertie" 1:05:41
is my partner's son. Gotcha. He lives,

Scott Benner 1:05:46
no, he lives with us. He does live you. Okay, yeah. Wait, I thought he had the stapler, but he didn't live with you.

"Gertie" 1:05:52
My partner does not live with me. My partner's son lives with

Scott Benner 1:05:56
us. You have a boyfriend whose kid lives two hours away. His kid lives with you, but you don't live with him. Yeah, who's paying for the kid? Grandma, his grandma, or your mom?

"Gertie" 1:06:11
I live with my boyfriend's mom, okay, my boyfriend's son, one of my sons, and myself.

Scott Benner 1:06:18
All right, listen, I don't care, and this is none of my business. But why doesn't he live with you?

"Gertie" 1:06:22
I live with you? Because we moved in here when covid hit, and his mom thought it would be best if he stayed with his grandfather during covid so that he could run the errands and stuff and prevent risk of his grandfather getting covid.

Scott Benner 1:06:36
So he's currently like, helping his grandfather,

"Gertie" 1:06:40
yeah, and as grandpa's gotten older, it's just been better for him to stay there and help with Grandpa, but

Scott Benner 1:06:46
he's six hours away. Yep. How often do you see him? Once or twice a year? Wait once or twice a year. You're not dating him. That's that's different. He's abandoned his child with you. That's all that's happened here. Well, his son

"Gertie" 1:07:00
was with his mom, but he came to visit for Christmas, and was like, I miss you guys. I'm moving back in. And I'm like, okay,

Unknown Speaker 1:07:07
he's like,

"Gertie" 1:07:08
I want to get my GED. And I'm like, Okay, let's do that.

Scott Benner 1:07:10
All right, listen, since you're anonymous, I'm gonna I'm gonna measure this entire situation with this next question. When you see him once or twice a year you have sex. Nope, you are not dating him. I just want you to know that. Okay, I

"Gertie" 1:07:23
want you to know that I agree with you. I just

Scott Benner 1:07:26
don't think he's figured it out yet. So, okay, what are we gonna call this episode? I don't know me either. Just call it. I don't know. I might call it frozen sausage. Oh, that's a good one.

Thank you. I appreciate that.

Unknown Speaker 1:07:45
I like that.

Scott Benner 1:07:46
I'm so worried I might bleep out my podcast ideas. Some of them are so fcking good.

Unknown Speaker 1:07:52
I love them. I was

"Gertie" 1:07:53
like, someone's gonna definitely take the first one of arguing with Scott. Oh,

Scott Benner 1:07:58
please. There's a cold wind episode coming out tomorrow where a doctor from Israel just argues with me for an hour and a half. So trust me, it's not the first one, but I had a great time arguing with her too. I love being arguing with people about anything. Doesn't even matter. I just love arguing. Yeah,

"Gertie" 1:08:14
I don't like arguing unless it's like today, that is acceptable arguing, because people, you know, we're not like throwing names at each other, we're having a conversation. So I wouldn't necessarily call it arguing.

Scott Benner 1:08:29
I have to tell you, I've decided that I'm going to start series within the podcast called, I heard I don't understand and arguing with Scott. I don't think rewriting history works inside of the juicebox Podcast. I'm just gonna make them I heard us. Yeah, I heard is good. This is a great idea. I have six months until your episode comes out, so I have six months to make this happen so somebody can't rip me off, and I don't, I'm not worried you'll tell somebody, because I think if you tell somebody, they'll just think you're making it up. So I'll be safe there. Well, the only

"Gertie" 1:08:59
person I would tell is my ex husband, and he would think that it's awesome, and he's like me. We're very private people.

Scott Benner 1:09:06
I gotta tell you something already, your shit is up, but I like you a lot. You didn't say one thing today that Carol Brady would have been like. That makes sense to me. Not one. I

"Gertie" 1:09:21
have never made sense to anyone. My I'm broken. Can

Scott Benner 1:09:25
I ask an inappropriate question before we go? Sure? Are you someone else right now or just not? Oh, so there's just no sex.

"Gertie" 1:09:32
No. I have no desire to be with anyone. Okay,

Scott Benner 1:09:37
so it's not necessarily the I can't believe we're calling them your partner when it really sounds like I see my mailman more than this, but like I do see my mailman. I actually shook my mailman's hand the other day. So I think he and I are dating. If you and this guy are dating, I don't know what any of that means. I don't have time if we started talking about this, I swear we'd be talking for three hours ago. I have to stop myself, but, but my point. Is, is that the sex thing's not about the guy. It's in general. It's

"Gertie" 1:10:03
just in general, I have no desire. Do

Scott Benner 1:10:06
you think he's with someone else? I don't, honestly

"Gertie" 1:10:09
think so. It's not in him, and, no, it's

Scott Benner 1:10:12
definitely not in you. God damn it. What a way to end this. All right, we're done. Don't worry about it, hold on a second.

Prolonged hyperglycemia can lead to serious health problems and long term complications. Learn more at Medtronic diabetes.com/hyper this episode of the podcast was sponsored by Medtronic diabetes. US med sponsored this episode of The juicebox podcast. Check them out at usmed.com/juicebox, or by calling 888-721-1514, get your free benefits. Check and get started today with us. Med, a huge thank you to one of today's sponsors, gvogue glucagon. Find out more about G vo hypopen at gvoke glucagon.com. Forward slash juice box. You spell that, G, V, O, k, e, g, l, U, C, A, G, o, n.com, forward slash juicebox. If you're living with type one diabetes, the after dark collection from the juicebox podcast is the only place to hear the stories that no one else talks about, from drugs to depression, self harm, trauma, addiction and so much more. Go to juicebox podcast.com, up in the menu and click on after dark there, you'll see a full list of all of the after dark episodes if you're ready to level up your diabetes care. The Diabetes Pro Tip series from the juicebox podcast focuses on simple strategies for living well with type one. The Pro Tip episodes contain easy to understand concepts that will increase your knowledge of how insulin works. And so much more, my daughter has had an A, 1c, between five, two and six, four, since 2014 with zero diet restrictions, and some of those years include her in college. This information works for children, adults and for the newly diagnosed and for those who have been struggling for years, go to juicebox podcast.com and click on diabetes pro tip in the menu, or head over to Episode 1000 of the juicebox podcast to get started today with the episode newly diagnosed, we're starting over and then continue right on to Episode 1025 that's the entire Pro Tip series, episode 1000 to 1025 Hey, thanks for listening all the way to the end. I really appreciate your loyalty and listenership. Thank you so much for listening. I'll be back very soon with another episode of The juicebox podcast. I was looking for a way that we could all get nice and tanned and meet each other and spend some time talking about diabetes. How are we going to do that on a juice cruise. Juice cruise 2025 departs Galveston, Texas on Monday, June 23 2025 it's a five night trip through the Western Caribbean, visiting, of course, Galveston, Costa, Maya and cozmel. I'm going to be there. Erica is going to be there, and we're working on some other special guests now. Why do we need to be there? Because during the days at sea, we're going to be holding conferences, you can get involved in these talks around type one diabetes, and they're going to be Q and A's plenty of time for everyone to get to talk, ask their questions and get their questions answered. So if you're looking for a nice adult or family vacation, you want to meet your favorite podcast host, but you can't figure out where Jason Bateman lives, so you'll settle for me. If you want to talk about diabetes or you know what, maybe you want to meet some people living with type one, or just get a tan with a bunch of cool people. You can do that on juice cruise 2025, space is limited. Head now to juicebox podcast.com and click on that banner, you can find out all about the different cabins that are available to you. And register today. Links the show notes. Links at juicebox podcast.com I hope to see you on board. Hey, what's up everybody? If you've noticed that the podcast sounds better. And you're thinking like, how does that happen? What you're hearing is Rob at wrong way, recording doing his magic to these files. So if you want him to do his magic to you, wrong way. Recording.com, you got a podcast. You want somebody to edit it. You want rob you.


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#1352 Poopy Pills

Scott Benner

Emma has type 1, uses Ozempic and has anxiety about eating in front of people.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome back to another episode of The juicebox podcast.

Emma is a returning guest. She was originally on Episode 1090 called diabetes breakdown. Today, we'll talk about her type one diabetes, her use of ozempic, how she lost weight, her social skills, anxiety and how she feels eating around other people. Nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan to save 40% off of your entire order@cozyearth.com All you have to do is use the offer code juicebox at checkout. That's juicebox at checkout to save 40 percent@cozyearth.com Are you an adult living with type one or the caregiver of someone who is and a US resident, if you are, I'd love it if you would go to T 1d exchange.org/juice, box and take the survey. When you complete that survey, your answers are used to move type one diabetes research of all kinds. So if you'd like to help with type one research, but don't have time to go to a doctor or an investigation, and you want to do something right there from your sofa. This is the way t 1d exchange.org/juicebox, it should not take you more than about 10 minutes. Did you know if just one person in your family has type one diabetes, you're up to 15 times more likely to get it too. So screen it like you mean it. One blood test can spot type one diabetes early. Tap now talk to a doctor or visit screened for type one.com for more info. The show you're about to listen to is sponsored by the Eversense 365 the Eversense 365 has exceptional accuracy over one year, and is the most accurate CGM in the low range that you can get ever since cgm.com/juice box. Having an easy to use, an accurate blood glucose meter is just one click away. Contournext.com/juicebox That's right. Today's episode is sponsored by the contour next gen blood glucose meter.

Emma 2:22
Hi, I'm Emma. I have type one diabetes. I'm 23 years old, and I'm back

Scott Benner 2:30
because where were you the first time you were in Episode 1090 it was called, what was it called?

Emma 2:36
It was called diabetes breakdown, right?

Scott Benner 2:38
Do you remember why I called it that? Because I don't,

Emma 2:41
because I cry all the time, and we kind of broke down diabetes too. So it was had a little double meaning.

Scott Benner 2:50
There was this one of those episodes where at the end I was like, try something and let me know how it goes.

Emma 2:55
I think so. I think you were, you were just like, stay, if you stay on ozempic, then come back and chat about it. Yeah,

Scott Benner 3:02
and you did, yes. Okay, so let's just do a high level overview. Diagnosed. How long ago?

Emma 3:08
2230, my gosh. Three years. Three years.

Scott Benner 3:13
Okay, and then at what point did your doctor add GLP to you?

Emma 3:18
It was about a year ago. Okay,

Scott Benner 3:20
so you've been on ozempic for a year. Is your insurance covering it?

Emma 3:26
Yes, it is. I'm lucky that way, nice.

Scott Benner 3:29
Do you know the diagnosis code they use to get it covered? No, I don't. Okay. Like, did they say you have insulin resistance or type two and type one? Do you know

Emma 3:39
I think it was insulin resistance. Okay, yeah, wow, good insurance.

Scott Benner 3:45
Let's just go right to that part. So your prior to the GLP, what are your a one C's, like, about how much is your total daily insulin, that kind

Emma 3:55
of thing. So my a 1c were fine. It was like, I think I was even in the fives at that point, but I was like, having trouble with management, because my pumps weren't lasting as long as they should be, because I was using so much insulin, either they would run out, I would use, like, the full 200 units like the max amount, but they would still run out before even the three days. Or I would be doing such huge boluses, 10 units or above, because of my insulin to carb ratio so high, I

Scott Benner 4:35
guess, flooding your sites and they weren't absorbing well and all that stuff. Yeah, right, right.

Emma 4:40
So my pumps were, like, leaking and stuff, and I wasn't getting as much insulin as I needed. So I was, like, having all these ties. And it like it wasn't affecting my ANC, but I was just it was affecting my mental health, because I was, like, stressing about it all the time. And just like, it was just not also

Scott Benner 4:56
using a ton of insulin, like, like using over. Or so you have OmniPod, right? Yeah, I just know because you said over 200 units so, like, so, so you're using over 200 units of insulin every three days. Yeah, wow. Were you gaining weight? No, no, okay. Was your weight prior to GLP where you wanted it to be? No, is there an amount of weight, you would tell me that you were over where you wanted to be. Well, at

Emma 5:24
one point I was, like, 150 pounds when I was, like, a freshman in college, and I also just, like, wasn't eating because I didn't like eating around people, so I lost a ton of weight, and I was not eating in a healthy way, but I was really happy with how I look. But then I got with my boyfriend, now, fiance, and we love to eat together, and so that part stopped. So I started eating really well, but then I gained some weight, so, and at that point we had been together for like, three years,

Scott Benner 5:59
Emma let me, let me pick through for a second. Yeah, if I asked you this the last time, tell me, but didn't like to eat in front of people. What does that

Emma 6:10
mean? I just like, I don't know. It's a weird part of my brain. I just have anxiety when I'm eating around, like, new people, not like people that I know are, like, my good friends, but like, if I don't know someone, I am like, thinking about what, like, what I'm eating, and if they're like, judging me for what I'm eating and like, how I'm eating it, and like, how much of it I'm eating. It's a really, really unhealthy way of thinking. But I just can't stop so when I went to college, I didn't know anyone, and we would like go to the dining hall, because that's what you do when you're a freshman. And I was, like, finding myself eating around all these new people, and, like, I just it was really hard for me. I eventually got over it. Obviously.

Scott Benner 6:56
Have you ever talked to a therapist about it? No. Do you think you should, or is it okay when I

Emma 7:02
go to therapy? It's probably something that I will talk about, but I just haven't, like pushed myself to go to therapy yet, which I know is bad, and like, everyone should go to therapy, but I just, I don't know, listen,

Scott Benner 7:16
it's not bad, and everybody doesn't have to go to therapy. I was just wondering if you had that's all because it seems kind of like a significant thing.

Emma 7:23
Yeah, well, it's not anymore, just because I'm not really surrounded by new people. The thing about now is that I as a as a teacher, I like, don't go to the lunchroom to eat with all of my colleagues that often. I usually just eat in my room, which is, like, fine, and I like, know, all my colleagues, and I like them, and I'm like, still forming friendships with them in other ways. But like, I just don't find community around food in that way. I don't know you have any insight into this at all. No,

Scott Benner 7:58
no, your mom always been. Did your mom talk about your weight or something like that, or

Emma 8:03
no, like, my family's never really been like that. I don't know it's it was probably just me being on the internet as at a young age and being impacted by that. But like, when I was in high school and I would do, like, summer camps, like overnight, like two weeks, wherever I would it was the same thing. That's kind of where it started, I think, summer game. But yeah,

Scott Benner 8:26
this episode of The juicebox podcast is sponsored by the ever since 365 get 365 days of comfortable wear without having to change a sensor. When you think of a continuous glucose monitor, you think of a CGM that lasts 10 or 14 days, but the Eversense 365 it lives up to its name, lasting 365 days that's one year without having to change your CGM with the Eversense 365 you can count on Comfort and consistency. 365 days a year, because the ever since silicone based adhesive is designed for your skin to be gentle and to allow you to take the transmitter on and off, to enjoy your shower, a trip to the pool or an activity where you don't want your CGM on your body, if you're looking for comfort, accuracy, and a one year where you are looking for ever since 365 go to Eversense cgm.com/juicebox, to learn more. Far too often, we accept the blood glucose meter that someone hands to us. The doctor reaches into a drawer and goes, Here, take this one. That is that, is that the one you want, is it accurate? You have no way of knowing. But if you want accuracy, and you want to be confident in the blood glucose readings that you're getting from your meter, you want the contour next gen. It's incredibly easy to get the same meter that Arden uses. Just go to contour next.com/ Flash juicebox. That's all you have to do. The contour next gen is easy to use and highly accurate. It features a smart light that provides a simple understanding of your blood glucose levels, and, of course, Second Chance sampling technology that can help you to save money with fewer wasted strips. Contour next.com/juicebox your kids mean everything to you, and you do anything for them, especially if they're at risk. So when it comes to type one diabetes screen, it like you mean it, because if even just one person in your family has type one your child is up to 15 times more likely to get it. But just one blood test can help you spot it early. So don't wait. Talk to your doctor about screening tap now or visit screen for type one.com to get more info and screen it like you mean it, oh, I don't know. All right, it's okay. We'll get past it. Did you get well, wait now I'm gonna ask one more question. Do you consider it an eating disorder of some kind?

Emma 10:59
You could,

Scott Benner 11:01
I guess I was talking to you. Hold on, let's, let's find out if it's actually

Emma 11:08
I call it like eating anxiety is what I call it,

Scott Benner 11:11
not being able to eat in front of other people considered an eating disorder. Lisk, chat. GPT,

Speaker 1 11:17
yes. Okay, not being able to eat in front of other people can be considered a sign of an eating disorder or related anxiety issue. This condition might be linked to social anxiety, where the person feels self conscious or anxious about being observed while eating. It's important to consult a healthcare professional. It's

Scott Benner 11:37
gonna tell you the stuff you're supposed to Yeah. Do you have social anxiety?

Emma 11:41
Yeah, okay. But doesn't everyone have a little bit of social anxiety?

Scott Benner 11:45
None, zero. Wow, absolutely not. What's

Emma 11:47
that like?

Scott Benner 11:48
It's fcking awesome. You couldn't say something to me that I couldn't just do in front of people.

Emma 11:58
That's amazing. I

Scott Benner 11:59
don't even care. I I swear to you, like I have, like, opportunities to speak sometimes in front of, like, four or 500 people at a time, like in person, and I'll be standing outside chatting with people, and someone will come up to me and go, Hey, your thing's about to start. And I'll go, Oh, okay. And someone will say, what are you speaking about? And I'll go, I don't know, and I just walk in, wow. And just go and then it's over. And people like, oh my god, that's so great in the situation I'm I'm describing. Now, I had, like, a flimsy understanding of what I was there to do, but I never, like, you get up there and like, Hey everybody, I'm gonna talk now and just start talking. And there's no like, I don't feel anxious about it one little bit. My My heartbeat is low. My pulse is low. Like, I'm like, it's, it feels very good to me to be doing that. That's kind of like a superpower. Well, would be if I could fly too, if I could fly while I was doing it, then I would completely agree with you. Like, I know we're supposed to say we feel lucky if anything happens to us. I like, how at this point now, I have to say I feel lucky to have a house, I feel lucky if I have food. I'm lucky if I have insurance. I feel lucky that I don't have diabetes. I feel lucky that my kid has insulin. I feel lucky that I don't have anxiety. There's a lot of ass covering going on in society right now. Emma, so I'll get on the train. I feel lucky that I don't have a problem with that, but it's just the thing that I'm good at. There's plenty of things I'm not good at that. You know, nobody says they feel lucky if they can do anyway. All right, so you have social anxiety to some degree. This is how it pops up. Blah, blah, blah, get the diabetes pumping using a lot of insulin. Doctor says, Hey, why don't you try ozempic? And you go, all right, whatever was that, what you said, like, cool, let's do it. Or what do you what were your thoughts

Emma 13:45
at that point, it was already, like, kind of, there was already some stigma attached to it, like in the media, with, like, all of these celebrities taking it for weight loss and blah, blah, blah, blah, blah. And I was, like, I, like, had a ton of questions about, like, side effects and, like, how else it would affect me? My doctor was basically like, well, there could be side effects, like nausea and all this stuff, but you don't know how it will affect you until you take it. And it's something that we can try, and then if you don't like it, or whatever, we can just, you know, something else, yeah. I was like, Okay, I guess I'll do it, yeah? And so I started taking it. And I think when we filmed, I'd been taking it for like, one week, yeah, basically, you

Scott Benner 14:31
had just started. So, so let's walk through it. Like, what was it like in the beginning? What did you notice? Are you still taking it now? Let's hear all about

Emma 14:38
it. At the beginning, I feel like there was kind of a drastic change, like it really affected my appetite, and it really affected how much insulin I was using. I used a lot less, and at the beginning I like, wouldn't have to pre wolf at all, basically because. Because it was making the insulin work faster too. Like, I wouldn't have to wait 20 minutes. I could, like, bolus right before I ate, basically, and that kind of happened every time my dose would go up. So, but then, I don't know, it would kind of like, those effects would, like, not be as much, and then it would kind of plateau, hold

Scott Benner 15:22
your thought, OmniPod dash, or OmniPod five. OmniPod five. Okay. And basically, I feel like there are two things happening. First of all, you take the medication, and it helps with insulin sensitivity. Helps with insulin sensitivity a bunch of different ways. One of those ways is by slowing your digestion down. So is your insulin working faster, or are you digesting more slowly? So the insulin is having more time to work before the impact of the food is coming. Which do you think you were seeing?

Emma 15:50
Probably the digestion, okay. Okay.

Scott Benner 15:54
And then as you upped your dose, you noticed it for a while, but then it wasn't as as much at that point.

Emma 16:01
Yeah, so. And then I think, oh, sorry, go ahead, yeah.

Scott Benner 16:04
Just let me jump in for a second. My This is a guess. This is an absolute guess, right? But you're using one dose for a while. You get to kind of a a point where the pump is seeing your total daily insulin being aggressive. Based on that, suddenly you take a new dose, which changes probably your slows your digestion down more. You get the other impacts of glps, and on top of that, so better insulin sensitivity, but also you probably can't eat as much. Is that right? When you go up a dose, yeah, and then the algorithm and the OmniPod five is still bolusing at you like you're on your old settings with a lower dose, and then eventually, I would imagine that the pump then figures out your total daily insulin for your new reality, and then it levels out again. That's my expectation for what happened.

Emma 16:53
Yeah, you're probably right. It's possible. I never, I never thought it through like that, but you're probably, probably right. Well, you're busy

Scott Benner 17:00
dodging people when you have a pretzel on your hand, so you don't have time to think about these things.

Emma 17:04
Oh my gosh. The thing about ozempic, about taking this weekly injection, is that I love that it's made me lose or, sorry, use less insulin, and that now my UMP works better and everything. But it's also another variable to think about in my brain when I'm bolusing and stuff, because there's, like, it's not as effective, like, there's different effectiveness, like, throughout the week. Does that make sense? Like, it kind of peaks in the middle of the week, yeah, and then it, you know, so I have to also think about that when I'm bolusing, whether to like, kind of lowball the carbs, because I know that the OmniPod is like, working really well right now, because it's in the middle of the week, yada yada. So, like, most of my lows happen in the middle of the week, yeah, because it's just working well. The

Scott Benner 17:56
half life of the medication is very short, so you inject it on a Saturday, and now you're all juiced up Saturday, Sunday, Monday, Tuesday, then Wednesday. It starts to wane, right? And then Thursday, Friday. So even if you're you'll notice, like, I can, like, I can eat more on Thursday or Friday than I can on Monday or Tuesday, and yeah, and so and so. The way you're adjusting around them is by basically, like, being more or less aggressive with your carb counts, depending on where in the week you are. Yeah, that's smart. Yeah, that's really smart. Okay, so how much, like you said before, you were using 200 units every three days. How many units do you think you're using every three days? Now,

Emma 18:42
did I see on my pump? I think it's like 50 a day, 50 units a day. So

Scott Benner 18:49
you you cut 50 units out over three days? So like 15, six, like 16 units a day, it went down.

Emma 19:00
Yeah, wow, that's great. And did you lose weight? Not really. Did you honestly? But I haven't, but I haven't been, like exercising or like actively trying, which now I am doing because I get I'm getting married in a year, so now I'm actively trying, trying to lose weight. So

Scott Benner 19:18
tell me how much weight you hope to lose 2530, pounds. Okay? And how much have you lost so far on ozempic, like,

Emma 19:27
maybe, like five, okay?

Scott Benner 19:29
And you've been using, really,

Emma 19:30
not that much,

Scott Benner 19:30
how long for a year a year. So what's your dose at now?

Emma 19:35
My sorry say that again, ozempic,

Scott Benner 19:38
dose, how much?

Emma 19:39
Oh, it's, I think I'm at four units. They're milligrams, yeah, sorry,

Scott Benner 19:46
yeah. So does she have you dialed a two milligrams inject and then do it again. Is that how that pen works? Or can you go all the way

Emma 19:56
to four? I think it's, I think it's a four. I might be wrong. Let me do. Because

Scott Benner 20:00
it's possible you're just not using enough, and that's why you're not losing weight.

Emma 20:04
It's the yellow box,

Scott Benner 20:05
Emma, the last time we spoke, did I turn into your dad at some point and feel like I had to take care

Emma 20:10
of you? You did. Dad's name is Scott. Starting to happen. It's two milligrams. It's two milligrams. I'm I'm silly. It's two, not

Scott Benner 20:19
four. That's okay, which is the most so, so you're shooting two milligrams of ozempic a day. Yeah,

Emma 20:25
no, a week a week. Excuse

Scott Benner 20:26
me, that was my fault and then, but so I think you're running into something that a lot of people with ozempic run into, which is that's the highest dose. And it's possible they could use more after a while, but it's interesting that so you haven't lost, I mean, lost five pounds in a year, which is great, but it's not a lot compared to what you're seeing with some people. So let's talk about it. Ozempic. Does it curb your appetite? Does it make you feel full in your head? Does it make your stomach feel full? Like what's all the impacts you're getting from it along eating?

Emma 21:00
I think it does. It has affected my appetite. It definitely did more in the beginning when I first started taking it. But that could also just be like, my brain getting used to it. Like, do I really remember what my appetite was like a year ago? I don't know, but I do think I'm eating less food, like I'm physically not able to eat more the

Scott Benner 21:22
mass of food is less, like, the actual like, like, physical amount of it. Have you changed the things that you're eating? Are there things that you can't eat anymore, or not attracted to anymore? That kind of thing?

Emma 21:33
I really don't like meat as much I didn't like ever love meat, but I sometimes I like, physically can't eat it. Like, it's just off putting to me, like the taste and the smell, like when meat is being cooked, I like, have to leave the room because it makes me feel nauseous. Sometimes.

Scott Benner 21:51
Are always census epic. Yeah, that's interesting. How are you getting your protein? I just

Emma 21:59
eat beet. My fiance. Just seasons it really well. He makes it he makes it yummy. But I, yeah, it's hard. I don't know chicken. I found that going vegetarian, chicken, mostly chicken. Yeah, chicken. Okay,

Scott Benner 22:12
so you're getting some protein every week, yeah? Okay, but you don't like, because Arden doesn't like the overall smell or taste of meat, either. But it was before, it was before her GLP as well.

Emma 22:24
Is she? Is

Scott Benner 22:25
she on it now too? Yeah, she's using Manjaro.

Emma 22:30
Okay, so my I just had a meeting with my Endo. I was talking to her about how I want to lose more weight and whatever, whatever, and she's moving me to Manjaro. Oh, cool. I don't know how different they are. She said that they that Manjaro is more like aggressive, or it like works better.

Scott Benner 22:47
So there's a GLP and a gip in Manjaro. It could help you more with weight loss. It might be easier on some of your gastrointestinal issues. If you're having any, are you having any? Do you want to talk about your poop while we're here? We

Emma 23:01
can go ahead. The truth is, I don't have any, like, I'm pretty regular,

Scott Benner 23:08
to be honest, nice. It comes out the way you like, it's not squishy or nasty or anything like that. No, yeah, it's

Emma 23:13
kind of perfect, I don't know. No complaints. Yeah, perfect.

Scott Benner 23:17
Like, you know, the the different, like, the different kinds of poop.

Unknown Speaker 23:23
Um,

Scott Benner 23:24
you don't know, Emma, this is what we're gonna do. Hold on a second. Hold tight. Okay. I had to do this with the guys helping me with my gut health stuff. And now you're gonna have to do it with me. Let me find the chart of poop. Googling poop chart gets me there, going for that. Hold on a second poop chart takes your right to it. I'll be god damn How about that? All right, ready? You can buy this on uh, Etsy, and hang in your bathroom if you want. Oh, great. All right. So there are seven types of poop, okay? Type one separate hard lumps, like nuts. Severe constipation is that you No, okay. Type Two, sausage shaped, but lumpy. Mild constipation, no, good. Type three, sausage shaped, but with cracks on the surface. I feel like that's me, okay. Type four, sausage or snake, like, smooth and soft.

Emma 24:26
Sometimes that's me. Keep going. I'm

Scott Benner 24:29
gonna keep going, then we're gonna go back. Okay. Type five, soft blobs with clear cut edges, lacking fiber, no. Okay. Type six, mushy consistency with ragged edges, fluffy pieces, nope. Type seven, completely liquid, watery, no. Solid pieces, nope. Congratulations. You have chosen the two of seven stool types that are considered normal. Congratulations. You are a type one diabetic and a type three and a type. Worship. Yeah, look at you. That's very good. It's super exciting. Don't you think

Emma 25:05
I know? Though it is. This is, like, my birthday. This is the best, yeah,

Scott Benner 25:09
you can just Google poop chart if you want, and then go to images, and they're just everywhere. There's also colors of poop we could go over. But I don't think it's necessary. Who got put in charge, by the way, this is the Bristol stool form scale for children, your or for adults, the poop chart who had to animate like, what poor person job was it to draw poop? Do you think? Yeah,

Emma 25:33
I don't know. I hope they got paid well. They

Scott Benner 25:37
didn't trust me. They absolutely didn't. They went home and they said to their fiance, can you believe that I had to draw poop today?

Emma 25:49
I wonder how many pictures they had to look at, like reference photos. That's

Scott Benner 25:53
the other thing. There were reference photos that they had to look at to draw it. And then they probably don't even have health care at their job. Terrible. Oh, all right, Emma, listen now, we know you're pooping, good, that's great, but they're moving. The doctor's moving you because of insulin resistance to the Manjaro or because they think you're going to lose more weight. What is the reason you're being moved?

Emma 26:16
I think it's because they think I want to lose more weight. Okay, I told her I was like, I have a wedding to be in, and I need to be skinnier Morgan, is what I said to her. And she said, Okay, I know

Scott Benner 26:28
you're young, but you want to lose weight because it's healthier for you. Okay, that's also true, and you'll just just look good in your dress because you're healthy. So but I

Emma 26:38
want, but the photos, I want to be able to look at the photos and be like, Oh, I look so happy and pretty. Not Oh, I look so happy, but I am fat. You know. Are

Scott Benner 26:47
you fat now?

Emma 26:48
I Yeah, it's just how you look at yourself, you know, no, but

Scott Benner 26:52
what about let's just use the BMI, the BMI skill. Do you know your BMI?

Emma 26:56
Oh, no, no clue.

Scott Benner 26:57
Hold on a second. Do you know how tall you are? Yeah. What's your height? 5454, you tell me your weight, yeah, 200 Okay, and then we'll get your BMI based on your height and weight. You have a body mass index of 34.3 this falls into the category of obesity. Generally, a BMI between 18 and 24.9 is considered healthy. So that's the way I would hope you would think about it, which is, you're not trying to look nice in a dress. You'll just look nice in a dress. I bet you, first of all, at your current weight, I bet you would look nice in your dress, but I hear what you're saying, and so you could lose, see, you said 30 pounds, but that's not really this happened to me.

Emma 27:42
Let me share with you

Scott Benner 27:45
when I started to lose weight, I was five nine, and I weighed 236 pounds, and my wife said to me, how much weight do you want to lose? And you know what I said, What? 20 pounds? And she goes, 20 pounds, you'll still be fat if you lose 20 pounds. And I was like, hey, actually, that's what she said. And I'm like, No, I'm like, 20 pounds is right? So I get on the juice, I'm hitting the juice, and I'm doing my business, and I'm losing my weight, and I lose 20 pounds, and I look in the mirror. And I thought, Ah, hell, I'm fat. How did I not realize this? Like, how did I not realize where my weight was and what it kind of become, you know what? I mean, they didn't see that. And so I thought, well, 30 pounds, obviously, and then I'm down to 2061, day. And I'm like, Nope, this is not close. And I started, like, looking at my body more about, like, health. And I was like, like, where am I carrying fat? Like, in that like, that fat needs to go for me to be healthy. I lost 2530 3540 45 now I've lost 47 pounds. And if you saw me today, you'd be like, Oh my god, Scott, you look fantastic. And I would say, thank you. And then I would say, I still have to lose weight. Now. I don't feel like weights my issue. I think fat's my issue. Like, I want the fat to go away, especially around my midsection. Don't want to have a heart attack, etc. My knees feel better. I'm healthier. My blood works better. All the other things that are actually important over how you look. Not that how you look isn't important, but all these things are getting better. But I stopped to reflect, and I thought, I don't know how much more weight I have to lose. Like, I don't think of it that way. I think of like, just thinking in terms of like the fat is what I'm saying to you, right? So when that when this fat that I'm squeezing right now is gone, I don't know what I'm gonna weigh, but I don't care, like the numbers completely inconsequential to me. I really don't care about the number I reflected on how far off I was on the number, like I was so wrong about the number. Her, and I don't know how that happened, like, you know, like you talked about your brain, like, getting used to things, or you look in the mirror and you just, you see yourself. You don't see you don't see what you look like five pounds ago, or something like that, for some and it's very quickly your brain tells you, like, this is what you look like. And you're like, Okay. And I'm like, I like myself. So this is great. You know what I mean? Like, I never really used to think about myself in terms of, like, when you ask me to describe myself, I would never describe myself physically. Yeah, I would tell you about, like, my thoughts, or how I think about things, or who I care about, what I do for a living, all those things would come out first. So I just don't think I ever accurately saw my health, especially as an assessment of my of my I guess I should have said I don't think I ever accurately saw my weight as an assessment of my health, like I just was happy with who I was as a person. So I never thought about my weight. And now I look back at a photo, and I think, how could I have thought that that person really only could have used to lose 20 pounds. It's really interesting. I wonder if you're going to go through some of those things as you as you lose weight. Yeah,

Emma 31:08
maybe probably,

Scott Benner 31:10
is it hard to talk about?

Emma 31:12
I weirdly, I have, like, an easier time talking about my than I do this. I don't know. I think it's because, like, as a woman, like, it's something that we have to think about constantly, and so I feel like I've taken the time and the work to like, not think about it constantly, which I'm happy with, because it's not like, impacting my mental health as much, but in that same vein, like, I don't love to talk about it, like even my my grandma, whenever she sees me, no matter what I look like, she's always like, Emily, you've lost weight, you look amazing. Like, even if I, even if I gained 50 pounds, I think she would still say that to me really, because she, like, just sees that as, like, a compliment and something that everyone wants to hear. I think that the younger generations are kind of moving towards, like, why is anybody talking about anyone else's body? Like, why is that even a topic of discussion, especially for women, just because it's so prevalent in society, and like, talking about how other women look, and comparing yourself, and all these things. And so I don't know, I've, I've conditioned my brain to, like, not want to talk about it. And like, I don't know, right?

Scott Benner 32:43
So first of all, I know what you look like, You're adorable, that's the first thing, okay? And like, so like, no one should think otherwise, and you shouldn't think otherwise. But it's interesting, because as you were talking about it, like you almost said something, I feel like you stopped yourself, like I've conditioned myself not to think about my weight that way for my mental health, but you paused, because for your physical health, it's not valuable.

Emma 33:06
But you know that, right? I guess so. I mean, I guess I think the thing about my physical health is that there's so much of my brain power that goes toward my physical health. In terms of diabetes, like, I make so many decisions about my physical health daily because of diabetes that everything else is just kind of, like, non consequential, like, it's not as important to me because my sugars are so important to me. I don't know if that makes sense. No, it

Scott Benner 33:37
does, because and I've I've interviewed a lot. I've recorded a lot. Today, I just talked to a guy who said that he started to gain weight with type one, and he thinks that one of the reasons why it happened is because he started seeing food and carbs as this thing that he could conquer with insulin, and he stopped thinking about it as nutrition or calories. Yeah. And so he's like, it didn't matter how much I ate, if I kept my blood sugar stable. I was like, I win, yeah. And he thought that. It felt like that was his only goal. And then he looked back in hindsight, and he's like, Oh, I was eating way too many calories, but I didn't think anything of it, because my blood sugar didn't go up, right? You know, I definitely relate to that. Yeah, so there's this like, and you're young too. So have you seen the South Park special about ozempic? No, I

Emma 34:30
haven't. Okay,

Scott Benner 34:31
they made a movie, like, a 50 minute movie about, like, ozempic and panchara. It's interesting, and there's a running joke inside of it, which I think took some flack online, but they said that, keeping in mind, this is satire, they're trying to make a bigger point. And basically what they were saying was, hey, if you're if you have money, you get ozempic or Manjaro, and if you don't have money, you get this other medication. And this other medication is body posits. Activity. And, yeah, I laughed, because I was like, oh my god, I see what they're saying, right? Like, big, like, bigger picture, what they're saying is, if you can afford to be thin, then here, and if you can't afford it, then we love you just the way you are. And I was like, Oh, my God. Like, because South Park is, generally speaking, a fairly liberal minded thing, but I think people would hear that as a very conservative view. Does that make sense? Yeah, am I making sense here?

Emma 35:35
Yeah, you

Scott Benner 35:36
are okay, okay, so, like, the idea of like, telling like, it's kind of like, it's kind of the feeling of like, look, we you know, there were, at one point, there were people saying, Look, I love myself the way I am. And everybody's like, Yeah, you should love yourself the way you are. And that at some point that that somehow translated into being unhealthy is okay if you love how you are. And I feel like somehow there's a connection between that and the person who told me that as long as I could conquer the carbs with insulin, I didn't think about the calories. Yeah, and either I'm drawing a really squiggly line or I'm not, I'm not, I'm not sure yet, because I'm in fairness, this is a podcast. I'm talking out loud, trying to figure something out. But you're in that space where you're young enough to think, like, I don't mean it this way, but like, like, you have more liberal views, which everybody has when they're younger. Usually, people's views get more conservative as they get older. You have liberal views, but you're not old enough to actually see the health concerns of extra weight. It makes me feel like if I got you into a time machine and made you 50 years old, and you lived for the next 50 years at a BMI of, like, 36 if you wouldn't go, like, I should have, like, done whatever I could have done back then, because this is where, this is where I am now. Anyway, yeah, it's these two competing ideas that kind of stop people from. It's the it's the psychological piece that stops you from worrying about the physical piece. If that makes sense. Anyway, yeah, and if you have to for your mental health, then that's, of course, I think paramount. But I don't think one doesn't exist because of the other. That makes sense, yeah. Anyway, your insulin needs are down, which is great. You are wanting to lose weight for your wedding.

Emma 37:26
How long until your wedding? A year, year.

Scott Benner 37:29
Oh, congratulations. It'll be in the summer. Yeah, very nice time to do it. Very nice. What is it you're going to do between now and then? Like you said, I'm not exercising. But is that a thing you're gonna add,

Emma 37:40
yeah, no, I bought, I bought a stepper. I also, like, hate going to the gym. It's a similar anxiety to my eating anxiety that I just don't like people observing me when I'm sweaty and gross. So I bought, like, at home, things to do. When we started doing daily, I have started doing daily, and it's, I don't know, it's kind of fun, because I can just, like, watch TV and do things I would normally do when I was sitting on the couch, and now I'm being active, which is nice, yeah, but yeah, but I know otherwise. Like, the thing about, okay, here's the thing, because you were saying how, like, You've lost so much weight and blah, blah, and you're always, like, you're always wanting to lose more. And my thing is that, like, I'm not super like, I see that my goal is 25 to 30 pounds, because I feel like that's totally doable in a year, and I don't want it to become like a completely different part of my life. Like, I like the way that I live, I like the things that I eat, I like the things that I do. And like, I don't know. I don't want, like, losing weight to, like, take over every moment of my day. Yeah,

Scott Benner 38:55
no, I understand. And I also don't want to put a number on it. That's so that would take so much time to get to that it would feel like a failure, even though you were moving in the right direction. Is that right? Yeah. Do you think you'd get to 25 pounds and go, Okay, that took as long as it took. I did it healthily. I'm gonna keep going. Or do you think you'd get to the number no matter what go, I did it, and that would be the end. Part

Emma 39:16
of me thinks I would just get to the number and be like, Okay, this is great, because, like, I remember what I looked like when I was that way. And the thing the thing about that is that however small I've been, I've always been, like, I look big, because that's just how women's brains work. Like we're just always comparing. So I don't know. Truth is, I don't know. I

Scott Benner 39:42
appreciate you talking through it. It's really very nice. It's it's a little listen. The one thing that's off putting about talking to you is you sound like you're 16, even though I know you're not. I know you're 23 and you're a teacher and you're out in the world being an adult and everything, getting married. But when you're talking like i i. There's a voice in my head that's like, don't ask her that she's so young. And then I'm like, No, she's not. Wait a minute. Like, it's hard to talk about, and I appreciate you talking about it, because it's obviously, it's not comfortable. Also, you know, where your body is good for you, your health and your happiness, etc, isn't necessarily tied to a BMI chart, you know, like, it's not at all. I'm happy to say that, like, I really don't care about, like, the number. I just care about my health, like it, really, like it, my blood work is so good now. And I'm like, okay, great, that's one step, but that's not a thing a 23 year old thinks about. And then, you know, like, my next step is to make sure I don't have a heart attack, like, that's literally, like, how I'm thinking about this, you know, my shirt size being smaller is nice and everything and, you know, but that's like, if I wasn't gonna have a heart attack and my blood work was good, I wouldn't, I wouldn't care about that part. Like, I'm gonna probably end up with loose skin. And the truth is, is, I don't think I care about that at all, you know, like, Good, yeah, even though it's visual, like, I don't think it's a thing I care about. You didn't have to adjust your insulin, though, the OmniPod five kind of did it for you, right? You just differently assessed the carbs until the pump caught up to your new need. Is that how you handled it? Yeah?

Emma 41:16
And my, yeah, and I, honestly, I don't I my settings. My endo gets mad at me because of how much I, like, I used to do, like, ghost carbs, because I would like have these highs, and I would like be looking at, like, that number, yeah. And so I would just tell my pump that I was eating even when I wasn't, and I've like, really tried to stop doing that, and I'm doing it less, partly because I'm not having as many highs because of Olympic but also because I'm just telling myself not to do it, and my pump will get smarter if I don't do it, my pump settings, my insulin to carp ratio and correction factor and all that stuff. I don't know how true it is, because for a while my incendi carb ratio was one unit to 10 carbs, because I would like look at food, and instead of seeing the carbs, I would see units, yeah, and so it was easier for my brain to have counter cats that like 10 units because it was easier math. And then my underwear just got mad at me, and she made me change my correct or my heart ratio. So now it's like eight. And so now I'm kind of having to relearn carbs are counting because I Wait.

Scott Benner 42:35
Was it working for you?

Emma 42:36
Yes or No, it was like, it was working fine, but I was like, just working too hard. And she was like, No, your pump settings need to be correct. And I was like, okay,

Scott Benner 42:47
so she made your insulin to carbo shoe a little stronger. Yes, okay. And that worked. That's been helpful. Yeah, have you remembered to go back into your manual settings and change them. So if you ever switch into manual, you're not getting like, like, crazily different amounts of insulin than you need. No, because your total daily insulin today is probably significantly lower than it was a year ago. Yeah,

Emma 43:14
right. I'm just never in manual, though, is the thing? Yeah?

Scott Benner 43:17
Well, you can go in your settings, just see your total daily insulin, do the basal, and then do the breakdown and go back and tell the manual, yeah, side of the pump. What's up? But okay, you don't go into manual ever. So OmniPod five works really well for you. Then,

Emma 43:32
yeah. Well, okay, my at my endocrinologist visit recently, she also suggested that I go to the, oh, it's the new, I should know the name of it. Oh, it's, it's the newer pump for teeth, slim. Is that the name of it? The Moby. I don't know it. It looks like an OmniPod, but it has, like an injection site and like a two inch tube.

Scott Benner 43:57
I think that's a tiny tube. Yeah. What's your A, 1c right now,

Emma 44:01
it's five, five.

Scott Benner 44:03
Why would she want you to change?

Emma 44:05
Because I struggle with my management around my period, and like, going from, like being super sensitive to being super resistant, and like having all that in my head is kind of hard, and like, taxing, right? And so if I were to switch pumps, I could have, like, a period program, basically, yeah, and be like it would. I could be able to make it really accurate, and whatever. And the other thing is that I could do extended boluses, which is something I, like, deeply miss from my OmniPod dash. Okay,

Scott Benner 44:44
yeah. Every time somebody comes on, they say to me, could you please ask OmniPod to put an extended bolus and OmniPod five? And I'm like, I not in charge of that. But okay, yeah, I hear that from a lot of people that they wish it had an extended bolus feature to help with, like, more fatty stuff, and I'm interested. To see what happens to you when they move you to the punjaro though, because I feels like there's a lot more ceiling for you that you haven't gotten to yet. Because the truth like, so we never got to this. So let's go backwards a little bit impact on I find it impacts like, three things. So how fast do you fill up your stomach, your physical stomach? Does your brain tell you you're hungry? Like, so does your brain tell you you're hungry ever sometimes?

Emma 45:25
But it's not. I don't know. The one thing that I've noticed, or if I get interrupt, is like food. Noise is like Gone, which I, like, always had before, right? I don't think about food and like, my next meal, and whatever, whatever I like, don't think about that stuff anymore, which is something that I did think about a lot, but, um, I would say I don't get hungry that often, but sometimes I do, depending on how long it's been since I've eaten, like I haven't I haven't eaten yet today, and I am Not super hungry, and it's like, 12, 130

Scott Benner 46:01
Yeah. So can you contextualize the difference between brain hunger and stomach hunger? I have sometimes a hard time explaining it, but like, you know what I mean? Like you have that empty feeling in your stomach, like you have to eat, versus the like I want food feeling in your head?

Emma 46:21
Yes, I so. I do feel stomach hunger, but not brain hunger.

Scott Benner 46:25
Okay. Do you have trouble eating even when you feel hungry? No, no,

Emma 46:30
not anymore. I think when I first started, I did, but not anymore.

Scott Benner 46:33
Okay. Did you have to teach yourself? I'm starting to think about it that way, like you almost have to teach yourself to eat on a GLP,

Emma 46:40
again, kind of, yeah, at school, I, like, don't eat a lot of food. I kind of only eat like one meal a day, like a big dinner, and then my lunches are like little snack packs with, like tiny crackers and like some cheese and like, that's it. Do

Scott Benner 47:01
you have a feeling for why you haven't lost more weight?

Emma 47:03
I don't know. I don't know just, I guess because, like, the food I'm eating, it's not that it's not nutritious, because I like, I eat my veggies and whatever. But I don't know, my boyfriend cooks with, like, lots of butter and tastes like that, which we're trying to cut that slow down. Yeah, we're not that active. Yeah, I

Scott Benner 47:27
think people think of butter as fat, but there's a lot of calories in butter too. Yeah, interesting. Are you just the person who like because you don't want people to see you sweaty, or because you just don't love activity, both food, noise. My wife talked about the food noise. She told me about it. I brought them up on here before, and she's like, I used to wake up in the morning, and first thing I thought was like, What's for breakfast? Yeah. Then she's like, and then I thought about it right up until I ate breakfast. Then I started thinking about what was for lunch. You know, that's that how it felt for you,

Emma 47:57
yeah. And it was not even like meals, but I'd be like, like, I would be like, bored, and I'd be like, Oh, I just want crackers, or I want like, chips. Like, I feel like it would be something to combat boredom, and I don't feel myself turning to food in that way anymore at all. Nice.

Scott Benner 48:18
That's excellent. Okay. Well, first of all, I wish you luck. I hope the night that the change, I mean, so are they going to put you on 2.5 to start or five of Manjaro?

Emma 48:27
I'm not sure. Okay, it's probably 2.5 for

Scott Benner 48:31
four weeks, then five for four weeks, then seven and a half. And they'll move you up until you get what you're looking for. Yeah? And then adding the activity will be a big deal for you, too. Pretty cool. Do you have trouble drinking water? Because some people even say, like, on the on the GLP, they not only you're not hungry, but you don't think about drinking either.

Emma 48:51
No, I like, I drink water, but I feel like I get dehydrated easier. I don't know I like, I feel like you need to drink more water than I had been. Okay. All right. Okay.

Scott Benner 49:04
So food, noise, hunger. So do your stomach feel empty ever? Like,

Emma 49:10
if I don't eat at school at all, then when I come home, I like, feel hungry in the way that my stomach is empty, which happens like, maybe, like, once every two weeks or something. I'm like, super busy at school, but I'm sorry, a lot of my answers are like, I don't know. Like, I It's weird, because I am someone who, like, researches things and gets super into that. But ozempic, I and and with diabetes, I'm like, super upfront, and I like to wear my sights where they're visible, and I like talk to you about it, yeah. But I think because there's so much stigma with ozempic, especially, I like, I'm not, I don't know. I'm not, like, shouting for the rooftops that I'm on OmniPod, because it's like, I don't know. I What will people think of me, which is like. Not nice, but I don't know. Oh,

Scott Benner 50:02
so, so what will they think of you that you're using a GLP medication?

Unknown Speaker 50:06
Yeah,

Scott Benner 50:07
are you afraid that they'll that'll make them think you have weight to lose? Or do you think, are you afraid it'll make them feel like you're cheating? Or what? What is it out of both?

Emma 50:18
Kind of both, and it's like, it's like, like, I am happy with how I look like, despite every, literally, everything I've said this podcast, like I am happy with how I look, and I don't like, I don't look in the mirror, and I don't hate myself. Like, I really am happy. So I feel like admitting that I'm on this medication I'm always like, but it's for my diabetes management, like it's for my insulin resistance. It's not because I'm trying to lose weight, which is, like, kind of ridiculous.

Scott Benner 50:50
I mean, it is, but I'm trying to figure out why you feel that way. Because I'm mentally

Emma 50:53
ill. I need to get therapist, that's why.

Scott Benner 50:58
But Do you actually believe you're mentally ill? No, that's just what the kids say. It's what the kids say. Do you think you need therapy?

Emma 51:05
I think everyone would benefit from therapy. Wait, even

Scott Benner 51:09
me, yes, I'm just kidding. Of course. I also, I, I get therapy all the time. On the podcast, I get to talk to people about all kinds of stuff. You're afraid of, what people will think I'm so I'm the opposite, like, if people say to me, Oh, God, you look amazing, the first thing I say is, I'm using zepbound. And they go, what? And then I make like, the, like, the motion, like I'm injecting something into my stomach, and they go, Oh, okay. But I haven't cared what anybody's thought of me since I was like, 15. I don't think so. It's awesome. Yeah, it's pretty cool. It just comes from, like,

Emma 51:42
I mean, you don't care, but like, I

Scott Benner 51:45
just, I grew up in a way where I needed to be my own person, you know what I mean, and I couldn't let somebody's opinion of what I was supposed to be doing or or thinking, like, impact me. Or I would have got sucked down a rabbit hole of being what they wanted me to be and I wasn't up for that. Having said that, I still I know that that's not as easy said. It's easier said than done for a lot of people, and I'm just I after I joked about this earlier, I feel weird saying this, but I am just lucky that that's the way my brain works. So you know, I recognize that it's just it's a crapshoot to feel the way you feel about something like I could easily be uncomfortable eating in front of people, and you could be, you know, super confident. And you know what I mean, like, who would know why it happens for one person not the other, right? But yeah, like, I just tell them right away. I'm like, I'm using ozempic work, great. I've lost 47 pounds. Like, oh, my God, that's terrific. You're all done. I'm like, Nope, I want to lose more. How much I'm like, doesn't really matter, but my guess is 15 or 20 pounds, and they go, no, no, you look terrific. I said, Please don't say that, because I don't care how I look. Try not to have a heart attack. One of the things I've run into the most along this journey is people telling me that I've lost too much weight, really, yeah. And I'm like, What is this? Then this thing I can hold on to here in front of me that has nothing to do with anything. It's not an organ. It's not important. It's not a muscle. Like, what is this? You look great, and it's just people are short sighted. They're like, You look better than the last time I saw you, so you're good. Yeah, that's how they think about it. But like, so what would happen if, I don't know if Emma was in the grocery store and some lady walked up to her and said, Oh, do you remember me from church? Let's just say, and you go, I don't remember you from church. She goes, I remember you. You've lost weight, you look great. What happens next in your mind?

Emma 53:38
I would be like, Oh, thanks. And then I would ask her something else, like, I wouldn't because, because, in my head, it's like, why are you commenting on my body?

Scott Benner 53:52
I don't know. Okay, what if you brought it up? What if, if they said to you, my God, you look so much healthier. I'm trying to do that. What did you do and you like were openly,

Emma 54:02
if they asked what I did, then I would be honest, for sure, but only if they asked such

Scott Benner 54:10
an interesting thing between the generations here, if I may, hold on a second, because everybody's judging each other constantly. It's, I mean, right, you do it?

Emma 54:20
Do you not? Yeah, yeah, no, yeah.

Scott Benner 54:23
So are you worried about what people are thinking of you? Because you know what you're thinking about them. No, okay,

Emma 54:28
I don't know. I'm not. I'm not a judgey person, but like you can't not like you can't just turn that part of your brain off. It's part of being a person, and that woman,

Scott Benner 54:38
if it's a human thing, to look at other people and make a judgment. When you talk about it, you say people judge each other like it's a bad thing, isn't it a normal thing?

Emma 54:48
I know in my brain that I'm saying nice things about other people in my head, but I don't I know that other people don't do that. You

Scott Benner 54:56
know, because you hear them. I.

Emma 55:00
No, because I assume the worst of humanity.

Scott Benner 55:06
But do you should I assume the worst of you? No, why would you assume the worst of them? Then it's

Emma 55:13
I don't know them. I don't know who they are, and they're strangers.

Scott Benner 55:17
This is interesting. I'm enjoying this. First of all, it doesn't matter what they think of you, because they have no impact or sway over you at all, like nothing, yeah, and if they're not actually saying it to you, then your worry is only something you're manifesting in your own mind. Right,

Emma 55:33
right? Okay, here's the thing, here's the thing, here's the thing, here's the thing, because it's, it's less about strangers, it's less about people, I mean, on the street, like, I really don't care about people that I don't know. It's more about social media and like, people that I know from high school, who I haven't seen in like, five years. Like, obviously, I look different than I did when I was in high school. And like, thinking about what they think about it and that sort of thing. It's not really about strangers.

Scott Benner 56:05
So it's not your mom, it's not people that you don't know on the streets. It's about people who you tangentially know, who will see you on Instagram. Yes,

Emma 56:15
which is so dumb. Oh, I

Scott Benner 56:17
know I'm listening to you. Yeah. So like, may I ask what seems like the most obvious question, why don't you delete Instagram?

Emma 56:24
Because it's have to be connected so that you can feel badly. No, I here's the thing. I don't I don't post that much on Instagram anymore. Like, I'm not like, it's not something that I obsess over. It's just like, when I feel like I should post, for example, getting engaged. I like, am constantly thinking about that, but if I don't have to post on Instagram, then I don't

Scott Benner 56:50
how many followers do you have on Instagram? Like, over 1000 I'm not laughing at you, but I am. Hold on a second. How many of them do you think are actually still on Instagram? I don't know. Okay, when you put up a picture, how many people like it? What's your number? I know, you know. I definitely know. You know,

Emma 57:07
my normal is like 200 ish, maybe a little bit more. But then my engagement post got like 700 Okay, or something,

Scott Benner 57:18
so a fifth of the people that follow you on Instagram, normally, like your picture, and when you put up your engagement picture, then all those, all those nosy bitches, like, double click, that is that, right? Yeah, okay, and this is a thing you've been like, you've can you've concerned yourself with,

Emma 57:39
yes, because I have to. It's not like I want to think about this. It's because I have to. Emma, do

Scott Benner 57:44
you know what I love about you? What you answer one way, but your voice says, I don't agree with what I'm saying, while you're saying, No, it's

Unknown Speaker 57:53
true. It's like, I hate

Scott Benner 57:56
this. It's fantastic to listen to you argue with yourself. It's like, my favorite thing, and if you don't giggle every couple of seconds, I feel like I'm letting you down. But that's neither here nor there. So you won't delete Instagram because it's very important, but it mostly makes you feel bad, but not because of what somebody says, but because of what you are afraid they're thinking, Yes, you understand this is all anxiety, right? Yes, right. So you don't just have an anxiety about eating in front of people. You have anxiety in general. Anxiety in general. Yes, yeah, you should have my job for a couple of weeks. You'd stop caring what people thought of you. Why? Oh, my God. Because if I got upset every time somebody cursed at me or told me that I'm pushing carbs on people, I'm pushing a GLP agenda. You deleted my comment, and that wasn't fair. You're trying to there. I don't have free speech. And then all the whining and fcking crying from the very what, you realize it's a very small percentage of people. It's not everybody. I have listen because I'm going to talk in your language for a minute. Okay? I have 21,000 Instagram followers. I have 75,000 Facebook followers, and my podcast has over 17 million downloads. Wow, I have reviews that call me a misogynist. Somebody is going to listen to this episode and say that I fat shamed you like no matter what I say or do out loud, someone's going to disagree with me or how I said something, or the word I chose, or that I laughed earlier about, everybody apologizes for everything all the time, because that is a very crazy, like young liberal, woke thing to do. Yeah, I just want to apologize for my privilege before I speak like, Jesus Christ, just say the fcking thing. Like, like, you know what I mean? Like, like, I you have insurance, and somebody else doesn't. Yeah, it's a travesty. It absolutely is. Everyone should have insurance. I'm not saying that, but we can't apologize for every like, how are we ever going to get through a problem if we can't talk about it? Great, we're always apologizing. I used to say all the time that when I was just blogging for diabetes, I would always say that most people's blogs were just so, like, filled with them apologizing before they spoke. They'd spend a paragraph saying, like, Listen, I'm not a doctor. This is not advice. You should not pre bolus your meals. It could be dangerous if you don't eat blah, blah, blah, blah, blah. But by the way, I pre bolus my meal like they'd spend five sentences out of talking you out of pre bolusing before letting you know that they pre bolus. And I was

Emma 1:00:34
that about is that about society? Or is that just about like liability?

Scott Benner 1:00:37
Is that the same thing? If I'm gonna say I just picked up my GLP meds on Friday. You know what? I paid for them? What? $25 so if I don't start by going, I want to just recognize that I have privilege, and I have a good health care and I can afford $25 and and it's also I have a car, and I'm so lucky to have a car, because so many people are are unable to drive, and I was able to drive to the pharmacy and like so I want to really say that I recognize my privilege, which is just basically saying, Here's my disclaimer before I tell you how much my GLP medication costs. And then if I if I recognize my privilege, then you're not allowed to be mad at me, right? But you know, who's mad when people are mad? Who just people who want to be mad? Yeah, yeah. No one's upset that I have insurance. Nobody gives a gift that I have insurance, right? But it but there are people who take great pleasure in going you have something, and they don't. You said it out loud. You're making people feel bad. I'm not making people feel bad. How am I making people feel bad by saying I have health insurance ridiculous in some way, shape or form, that, like apologizing before you're speaking is no different than putting out a disclaimer before you say something valuable, like you're trying to deaden the response that comes back, but you really mean what you're saying.

Emma 1:02:00
Right? Yeah.

Scott Benner 1:02:02
I say to this, I believe that a lot of your anxiety, and even people your age's anxiety, is coming from this thing that you're worried is happening in other people's heads. Yeah, and what I'm saying is them, who cares what they think? Go

Emma 1:02:19
ahead. That sounds wonderful. That sounds wonderful. That sounds wonderful coming out of your mouth. But can I get that in my brain? Sure. No, right now, therapy.

Scott Benner 1:02:26
Well, listen, I just watched this thing. Listen, let me tell you something. Emma, why you say no, maybe I can. Okay, okay, I just watched on the Netflix. I don't know if you're aware of what Netflix is. There was a What's that called when they tell you a bunch of stuff, and it's not entertaining. Oh, Christ. Why is the simplest word escaping me? It's a movie that's informative. To tell you about a thing like a documentary. Thank you, Jesus Christ. That was embarrassing. Okay, so I just watched a documentary that I want to say that rob the editor of the podcast, told me about it's about gut health, right? And at some point in the documentary, there are these people who are using other people's poop to replace their own gut biome. Now let me just say this real quick. Hold on, Emma, nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan. I said that mostly because of how we were talking about disclaimers medical and I thought it was funny. So anyways, this lady comes on, lady girl, she was in her mid 20s. I think she's talking about her poop doesn't go well, like, just a, I mean, a literal show when she's on the toilet, right? Everything's wrong. Seven, stage, like, six, you got it. You were paying attention. Emma, okay, like, she's got the diarrhea. Things are going wrong. She's like, she said something like, I can't enjoy food, like, I have anxiety when I'm eating because of what's gonna happen later. And she hears about this, these studies they're doing, where they're replacing people's like, gut biome with other people's like, poop like, you know, but very medically. But these are just studies, and this woman's like, gonna do it on her own. So hold on, you don't, don't cut me around. Oh yeah, she's gonna find a friend, right, and have a capsule, and she's gonna eat it. I don't know the details, but she does take her brother's poopy and put it in capsules. And I don't know any of the details, and I'm not joking, try this, okay, because I don't know what I'm talking about. I'm just relaying a story. So she does that, and in some time, she develops, I believe, hormonal acne that she's never had, never had in her life, but her brother has what? Yeah, no, hold on Emma. So then she realizes that's where it's from, and she pivots to her boyfriend's shit. I was just gonna say, oh my god, right. And she pivots to the boyfriend. The Acne goes away. OmniPod, and she starts picking up the boyfriend's mental health issues. What I know, right? There are little bugs that live in your belly. Did you know there are

Emma 1:05:10
bugs in your belly? Oh, and

Scott Benner 1:05:14
they change your the way your body works. This is what she was saying. So what I'm saying is Emma. I think if I shit in a pill and you ate it, you might be more

Emma 1:05:29
confident over Scott. I'm ready. Can I tell you, as long as you'll package them, I don't want

Scott Benner 1:05:38
to do the hard work. Okay? I know none of the details of how this is work. I don't think she just, well, listen, first of all, I don't know, but because they don't go over the details of how it actually happens, I would assume that's on purpose. We could ask chat. GPT knows, but I just want to tell you a second. This is a complete sidebar how proud I am of myself because I've wanted to mention the documentary on the podcast. I had no idea how to bring it up, oh my gosh, and that I fitted it in here and so x, I mean, really expertly wrapped it around all the themes of our conversation. I feel like a ingenious right now. Yes, yeah, no, I really do. No, no, no, seriously, I feel very good about myself right now. But how crazy would that be if, yeah, if that, if something like that is because if your anxiety, like, what if you changed your gut flora and your anxiety changed, this is not beyond the shadow of reasonability. If you listen to that documentary,

Emma 1:06:36
by the way, what was the name of the documentary? Well, remember? I

Scott Benner 1:06:40
mean, remember is a strong word. I couldn't remember the word documentary five minutes ago. But hold on a second, I'll find out for you. Props to rob, by the way, hack your health, the secrets of your gut. Okay, I enjoyed it. Don't look at the rot and tell you to score. Those people didn't like it at all. But I also think they said something about autism that pissed off a bunch of people whose kids have autism, so that might have hurt the Rotten Tomatoes score. Nevertheless, I don't know how valuable the information in that documentary is, but I will say this that I thought, my God, that girl got hormonal acne after never having it her whole life, and then picked up her boyfriend's mental health issues, like when she changed to his gut biome. And I was like, so they're looking at how to do this, but, but try to imagine, imagine one day in the future, you go to the doctor and say, Hey, I have social anxiety, and I'm very worried about what people think to the degree that I can't eat in front of people. And, you know, blah, blah, blah. And they walked up to you with a shaker, and they were like, hey, here you go. You said, What's this? You said, I just some shit from a really confident person. Oh, my God, my God. The

Emma 1:07:47
future is just, it pills, everything. No more medication. Just,

Scott Benner 1:07:54
I'm telling you, it's, I don't know that. It's crazy, pills and chat GPT taking over the world will just be robots and poopy pills everywhere. All right? Emma pills, poopy pills. Yeah, it's all about poopy pills, right now, that's what I'm saying. The whole world's just shit pills. You said, Have we fixed anything here today for you? Or no?

Emma 1:08:17
Fixed a strong word giving you a different perspective, like, right? Yes, I do feel like I've gained a different perspective. I have many things to think about. We'll probably be looking for a therapist as well.

Scott Benner 1:08:31
How many more therapy sessions with me until you're not anxious anymore? Do you think?

Emma 1:08:36
Yeah, I don't know. Yeah, I'd have to start paying you big bucks. First of all, I

Scott Benner 1:08:39
can't collect a fee on that because I'm not a physician, and that would be that would be against the law. But I want to say that I also don't think that anything about, you know what's funny? May we be serious just for fun at the end here. Yes, a lot of people write me and tell me that listening to the podcast has helped them with a lot of problems like this, and people who have been on the show have written me back to say that they've made some pretty big changes after our conversation. So I don't know that it's crazy, but it does seem unlikely to me, because you just said something so interesting a minute ago. You're like, how do I put that in my head? And I don't, obviously, I don't know that there's an answer to that, especially if it also could be biological, right? Is your mom anxious?

Emma 1:09:27
I think so. I'm very similar to my mom in a lot of different ways. Part of

Scott Benner 1:09:30
the documentary says that when you're in there cooking in the belly, you don't have any bacteria, and your first introduction to bacteria is coming face first through the hoochie canal, and you pick up hoochie stuff, bacteria, and then it's actually valuable that I can't believe I'm saying this. It's actually valuable that you come out near the mom's butthole, because you pick up some bacteria there that helps you right away to digest food and stuff like that.

Emma 1:09:57
Interesting, isn't that crazy?

You think any of that's true?

Scott Benner 1:10:02
I don't know. I don't either, but I'm going to talk more about documentaries on the podcast, because it's fun, but isn't that crazy? So you get those, you get bacteria like, moment one coming out, and then you've taken more through all these different things, and then you get this little like mix. But what if you started out with your mom's anxious bacteria. God, I wonder if any of that's

Emma 1:10:23
true, but I feel like my brother is not anxious. Maybe he came out first. Yeah, I don't know. I guess

Scott Benner 1:10:30
his face would still end up near a butthole at some point, though.

Emma 1:10:32
No, no, no, Scott, we were both C sections Oh, that's

Scott Benner 1:10:37
another thing they talk about in the in the documentary, that people who are C sectioned have different bacteria issues.

Unknown Speaker 1:10:42
This documentary covers everything. Oh, and please go watch

Scott Benner 1:10:45
it. Of course, really, of course you do, by the way. Now people are gonna be like Scott's listen to pseudoscience and blah, blah, blah again. Let me be clear, if you're thinking about it right now, go yourself. It's just a podcast and it's free. Don't listen if you don't like it. Okay, I don't care, by the way. I do care. I genuinely care. Please listen. I need to listen. But no, but, um, yeah, no, I listen. The details are auspicious, because my brain's not good, but I they talked about that there's a difference between being C sectioned and vaginal birth. Did your mom not love you enough to have you vaginally? What happened there?

Emma 1:11:18
I don't know exactly, honestly? Well, I know that my brother was C section, and then you can't deliver vaginally once you've had a C section,

Scott Benner 1:11:26
yeah, then they talk about the zipper, right? Like you just kind of pop it back open again, bring the baby out. Yeah, yeah, wow. Uh, also, I don't think if your mom didn't have you vaginally, that this doesn't love you. That was sarcasm, in case some of you can't hear that. Oh, that's interesting. All right, okay, I don't know. I love you, Emma.

Emma 1:11:45
I love you too. Thank you. This is awesome.

Scott Benner 1:11:48
I swear to God, these are the best conversations. I don't know what the UF you and I talk about, but like I told you, before we started recording, Isabelle, like, sent me a note. She's like, at the end of Emma's episode, you said you were gonna get back on and talk about her ozempic. And she's like, are you doing that book that she's such a nice girl. And I'm like, okay, she loved you. That's so sweet. Yeah, that nice,

Emma 1:12:10
yeah. All right. Would

Scott Benner 1:12:11
you have any questions for me?

Emma 1:12:13
I don't think so. Okay. Would you Well, okay. Would you actually be interested in booking an episode with Jose? He does not have diabetes, but he's similar to you and a caretaker way. But I don't know if you talk to people like that on here. Is that worth it? I don't know.

Scott Benner 1:12:27
Periodically I have once or twice. It's usually like one time I did a sister who had type one and her non type one sister. I interviewed both of them. I thought that was interesting. I think the problem becomes like, genuinely, the problem becomes, is that I get them on I say, like, so you're taking an interest in Emma's diabetes. He goes, Yes. And then I go, how so? And he goes, I understand, like, how to bolster things, stuff like that. I'm like, Oh, that's cool. That's nice of you. And then I don't know where it goes from there. Yeah,

Emma 1:12:56
no, that makes total sense. You like, it does not hurt my feelings that you are not interested in that at all. How

Scott Benner 1:13:01
is this the thing that doesn't hurt your feelings like an absolutely here you were absolutely turned down, like a person said directly to you, no, I don't like your idea. And you're like, that's

Emma 1:13:11
fine. No, no, no, for real. I'm just saying to your podcast, but it's not mine. But if

Scott Benner 1:13:17
you thought about putting up an Instagram post about this, wouldn't you kill yourself for six months wondering how I would respond.

Emma 1:13:23
Maybe, perhaps, Emma, did

Scott Benner 1:13:26
I tell you that worry is a waste of imagination? The last time we spoke?

Emma 1:13:29
No quote though. Yeah, it really is.

Scott Benner 1:13:33
You're wearing yourself to death. All you people out there, all you anxious people. I know it's not on purpose, by the way, I feel terrible like I'm being super serious, like I've had so many conversations with people who suffer with anxiety, and all you feel while you're talking to them is, I do really wish I could get in a pill and make them not feel this or what I don't really having that kind of lack of, that nervousness and that, that one wondering, I can't imagine How upsetting it is to feel like shackled by it. Yeah, you know it's,

Emma 1:14:04
it's quite debilitating at some points. Yeah, but it's not, it's not a constant thing for me, at least, which is good,

Scott Benner 1:14:10
right? Well, you do well, I mean, you, you teach people like that. You don't have any trouble with being in front of those people while they're No,

Emma 1:14:17
yeah, no. And like, when I'm in teacher mode, I feel like my anxiety goes away completely, like I could be in front of the entire elementary school, which I have to do weekly. I don't get nervous about it at all. That's

Unknown Speaker 1:14:28
fascinating kids, is

Emma 1:14:29
it just kids? It's like they're the

Scott Benner 1:14:32
judges, people on the planet. No, but they're,

Emma 1:14:35
but they're elementary kids. Like, when you get to middle school, it's like, I would never teach middle school in a million years. But like elementary kids, they're just like, sweet and they love you, or they love me at least. Have you seen

Scott Benner 1:14:46
all those end of year tiktoks from teachers, the ones who write down every thing a kid said to them all year and then read some into their camera.

Emma 1:14:53
But that's middle school and high school usually is right? I guarantee, yeah.

Scott Benner 1:14:57
Are you poor one kid? Ask the lady. She goes, why? And she goes, any kid says, because of those pants you're wearing,

Emma 1:15:04
oh my gosh, oh

Scott Benner 1:15:06
my God, just a launch. There's a never ending supply of videos of teachers telling you the things that students told them that year, and they're really horrifying. Yeah, so, but you're saying younger kids are all like, in a different mode, yeah,

Emma 1:15:21
like, like, I have gotten the worst I've gotten was after I got engaged, I came to school and all the kids were, like, so excited, and they all went to see my ring, and they were really sweet about it. And then one of my kindergarteners, like, saw all the commotion. She came up and she was like, are you pregnant? And I was like, No, I'm not pregnant.

Scott Benner 1:15:46
I'm already trying. I got it was epic. I'm working on it. Okay,

Emma 1:15:53
right? Yeah, but she didn't mean by it. It was just her being sweet and trying to be excited. I don't know. She saw

Scott Benner 1:15:58
a bunch of people being excited around you, and her mind went to, oh, she's having a baby, yeah, but that you didn't see poorly. You didn't say, Oh, my God, that kid's judging my weight. No, you're fascinating, Emma. How come on? It's because they're kids.

Emma 1:16:13
Yes, it's because they're kids and they're pure, yeah, I don't know it's much. It's easier. Here's the thing, I It's so much easier for me to be around kids and old people like I don't like being around people my age. Isn't that weird? No,

Scott Benner 1:16:30
I see what you're saying. See, because this goes to show how close you are to not having to suffer with this. Because if they're children of a certain age, you believe their thoughts are pure, and you think that old people's thoughts are pure, no, no, just easier

Emma 1:16:44
to talk to because, because they're, like, easier to joke with. I don't know I feel like, I feel like I'm an old soul in that way. I just find it easier because I'm listening. Because when I'm at school, I'm in teacher mode, and I'm not like my 20 year old self. I'm like, pretending I'm a teacher or an authority figure because I have to, because I'm a teacher, and I have a bunch of fifth graders who will bully me if I don't. So

Scott Benner 1:17:08
you make it as a teacher, yes, and you're comfortable with older people because they're more mature, and you feel like because of that, they're easier to talk to, they've seen more of the world. Do you think that they're going to be less judgmental because they've they're beyond it all,

Emma 1:17:21
I think so. And it's also because I feel like they look at me and they're like, Oh, she's just a fun one year old, and she's so cute and fun. But that's

Scott Benner 1:17:30
your opinion of what they think, yeah. Also, it was your opinion of what the kids think, and your opinion of what the people online might think, yeah, yeah. You don't actually know any of these people, no, right? Well, but can I tell you some things I know about old people for sure? What's two things I can tell you for sure what they're judging every moment of your life? Okay, that's the first thing, because they're alive. And the second thing is, if they're in a home, they're in like rabbits. You understand what I'm saying right now? Please. No, they are. They are. They are. Think about it. I want you to think about it. No, I actually don't. Anyway, do you know that you might not find a higher instance of STDs than in an old folks home?

Emma 1:18:14
That's horrifying information.

Scott Benner 1:18:16
Well, now you know those are the people you're comfortable

Emma 1:18:19
with. Oh my gosh. I actually, just to be clear, I actually did mean my coworkers who are probably around your age. That's actually

Scott Benner 1:18:29
old. You meant like me, so not like geriatric. Yeah, I'm very judgmental too. But see, it's funny, I don't see myself as judgmental. I generalize a lot because I think it's a quicker way to get to something, and I don't have time to, like, learn everybody's like, you know what I mean, like everyone's ins and outs when most of the ins and outs are fairly similar. But I don't, I really don't judge people like i And it's funny, because if I said that, if ARD was in here and I said, I don't judge people. We would then have a two hour podcast about it. Okay, actually, that's a great idea. But I don't feel judgmental of people. I genuinely do not care what you do, what you think, how you are like I really don't care. I am incredibly interested in it, and because of that, I talk about it a lot, and I wonder out loud about people's motivations and what they do in my personal life and on the podcast, etc. Yeah, but I have no judgment about it. Like you said, your height and weight earlier, I didn't have a thought in the world. I didn't go, oh, that means a thing. I just thought, I need those numbers so I can tell you what your BMI is, so we can talk about it like that and and I don't like I have no judgment about it whatsoever, none. I have no opinion about whether you should or shouldn't lose weight. I don't care. I get involved in these conversations. But me, personally, I'm very agnostic about things. Yeah, I really, genuinely, I genuinely don't give a what any of you do. You don't. To jump off a bridge if you want to do I'd be like, Oh my god, that was horrible, and that would be the last time I think about it. And so like, yeah, agnostics the right word,

Emma 1:20:08
Yeah, but you're not Wow. No, no, all right, I

Scott Benner 1:20:12
don't know what you're gonna do. Yeah? Is Jose anxious? Not

Emma 1:20:17
as much as me. Well, I feel like we're anxious about different things, interesting, like, he he has some relationship anxiety, but I don't at all with you, yeah, just because of, like, past relationships, like nothing that I've done. Oh, he thinks you're gonna break up with him. No, no. But when I get upset, he gets super anxious.

Scott Benner 1:20:42
Oh yeah, Disney from a divorced family, yes, yeah. He thinks you're gonna get he thinks your thing's gonna when he sees the angry people, he thinks there's gonna be a disillusion of the family, right? Yeah, I used

Emma 1:20:54
to feel like that. I don't carry any anxiety in our relationship at all. About

Scott Benner 1:20:59
your relationship. You have no anxiety, yeah, which is so beautiful. Just about your Instagram posts,

Emma 1:21:06
yeah, but you won't get rid of Instagram, no, because it's important. Yes,

Scott Benner 1:21:13
all right, I don't know what to do. We're finished. Now it's over.

Unknown Speaker 1:21:18
Yeah, we're not

Emma 1:21:19
gonna go anywhere from here. Yeah, there's

Scott Benner 1:21:21
nowhere to go. Just delete the thing. What do you care? Seriously, I only have it because I have this podcast. Yeah, that's fair. Yeah, if I didn't have this podcast, I wouldn't know what Instagram was. Wow, what's that like? It's fantastic because you're old, that's why, yeah, but what is okay? One last thing. What does that mean? Why? Because I'm older. Do I not care about Instagram? Because I grew up with Instagram, just like I grew up, I had a computer to stop it. Like, like, no, no, I had a computer. I had the internet. I know how to like, I know all about that. I've had all the little different social media things coming up, whatever those things were called, then Facebook, when it was huge, and blah, blah, blah, blah, blah, but why does it matter?

Emma 1:22:09
Oh, no, here's the thing, here's the thing. No, here's the thing, because it answers it doesn't. But also, I don't live in my hometown where I grew up, and I also don't live where I went to college, so I have all these people around the country who I'm friends with who are doing things I don't know what they're up to, unless I I'm

Scott Benner 1:22:30
gonna say something horrible. Are you really friends with them if you don't know what they're up to? Oh, okay, but aren't they just followers who you've met in person once?

Emma 1:22:41
No, not once. No, these are like friends from college in high school.

Scott Benner 1:22:48
When you're 40, you're gonna think back on those people and go, I wonder what happened to him, and you're gonna have no idea, and you're not gonna care. And if he's only presenting himself like, do you present yourself as you are on Instagram or the best version of you? Oh, the best version. Then, do you really know how those people are no, but I want to know what they're up to. I

Emma 1:23:06
don't know when they're getting engaged. Well, you

Scott Benner 1:23:08
want to know what they're up to. They think to pull out their phone when they think they have a good photo to take. That's not what they're up to. Emma, I'm right. It's okay if you don't want to.

Emma 1:23:17
But the thing is that Instagram is not going away. Social media is not going away.

Scott Benner 1:23:21
It goes away be the leader. It's completely gone. For the same reason. I don't understand how somebody could become cyber bullied. I don't understand why you won't delete Instagram.

Emma 1:23:32
Yeah. Well,

Scott Benner 1:23:33
do you know who? I know for sure is real, what? Right now I could walk downstairs at this moment in my life. See my son, my daughter, my wife and two dogs. These are the people I know for sure are alive. That's it. My neighbors left to go somewhere a couple of days ago. They could be dead. I have no idea if they never came back. I wouldn't even think twice about it. I'd be like, I wonder why that house is like, just sitting there. That's maybe what I would think. Okay, so like, and if my neighbor, I'm using them as an example, because they're lovely people. And this is definitely not happening. If my neighbor was somewhere right now seated, and he had 20 people around him, he goes, I want to tell you a story about a mother named Scott, okay, and he was bad mouthing me, like he was using all the like, the favorites, like, I should just get up all my bad reviews and read them. He's saying those types of things about me, right? Like just a horrible person, and blah, blah, blah, blah, blah, and he doesn't care about these. Is a massages now, he had this girl on one time. She was a stripper. He talked about her boobs. What a idiot, all that stuff. Okay, by the way, she's a stripper. What do you want me to talk to her about physics? Also, she's a lovely girl, and I really like her, and, but that's not the point. Yeah, he's off in the world somewhere, trashing me right now, I'm unaware of it. Does it matter? It matters to you, doesn't it?

Emma 1:24:49
I think so. Yeah, I

Scott Benner 1:24:51
don't give a why would it matter? There's 20 people I've never met before, three states over my neighbors telling them bad stuff about me. Why does it matter? Her, Emma, you're not going to help me because you don't think, yeah, because you agree with me.

Emma 1:25:06
I do.

Scott Benner 1:25:08
When's this going to change? What do you think will happen that'll that'll shift you? I

Emma 1:25:12
think maybe when I like, have a family, when I have my own kids, when I'm I don't know, worrying too much about their life and I can't I don't just have to worry about mine.

Scott Benner 1:25:23
Is it wrong of me to say when you have something that's actually worth worrying about to worry about? No,

Emma 1:25:27
no, that's probably true. Okay, all right. Oh, this episode's

Scott Benner 1:25:31
gonna get me in a ton of trouble. I hope you're happy. I can't wait to see that. I can't wait to see the reviews. Let's see which one of you is wokest When you review my conversation with Emma. Good luck. You

Emma 1:25:41
think they'll listen this way, all this way. There's no

Scott Benner 1:25:44
way they make it to them. No, no, we lost them. They were already writing the bad review back when I said, I don't I don't want to apologize for having health insurance before I talk about something like, yeah, they're already like this motherfucker, although used like words that make them sound fancy? Yeah, you want me to read you the words. I can find it for you real quick. Gonna find the last bad review and tell you what they said. I'm sure the last social justice warrior who left her review called me a misogynist. On a second, we'll find out I have a daughter.

Emma 1:26:14
Wait, so where do they write these reviews?

Scott Benner 1:26:16
I gonna tell you that.

Emma 1:26:19
Why don't you delete that app. You

Scott Benner 1:26:21
can't, because I get a report about I have I'm a business owner. I get a report about them sent to me.

Emma 1:26:29
Well, delete those emails. Okay, well, I

Scott Benner 1:26:31
don't read them with Listen, do I sound worried about this review? No, oh, here. Oh, here's the last person that hit me on the here's my latest privilege email.

Emma 1:26:41
Oh gosh, take

Scott Benner 1:26:42
a shot. Lose weight one star. I assume they would have given me zero stars if it gave them the opportunity. Wait, that's all they said. No, that's the title. Oh, as a person with type one that has struggled with body image issues, listening to Scott talk about how great he looks and feels because of we go, V is getting really annoying. That was wearing capital is really an annoying. And they used, and I want to be clear, I don't want to get this wrong. 123, it looks like six exclamation points. So I think they really meant it. If only we could all just take a shot to lose weight. Check your privilege. I want the person to know who wrote that, that, when I read that, I laughed like a son of a bitch, like I was like, how could that possibly bother them so much that they were like, how do you leave a review for this podcast? I have a weight loss diary trying to help people understand what it's like to be on a GLP medication because a lot of people are using it. I'm being incredibly honest while I'm on there, because I don't think it's going to be helpful if I get on and pretend, and I also don't think it'll be helpful if I get on and apologize for 20 minutes every time before I say something that you need to know anyway. That was that was that one. A lot of these are really great. I don't want to lie to you these. A lot of these are actually fantastic. Five stars, incredibly helpful. Uh, thank you for doing this. Everyone should have the juicebox podcast. All right. Fairness, there's not a lot of bad but I don't know. I fully admit, I don't understand why anybody would leave a review for anything. I've listened to things that I've completely disagreed with, and it has never made me want to leave a review for it. I don't understand, like, your whole generation of like, my thoughts are so important, I'm going to put them here. You know, who sees those reviews? Nobody, and if they do, it's because they're trying to figure out if this podcast is going to help them with their diabetes. And you may have just talked them out of trying it. And by the way, I don't talk about a GLP medication in the Pro Tip series, the bowl beginning series, or a number of other places where people with type one diabetes learn how to be healthy and take good care of themselves. So I hope that person's happy they probably just killed a child. Can you hear sarcasm? Emma anymore? It's yeah, okay, it's

Emma 1:28:51
okay. That's so funny. Yeah,

Scott Benner 1:28:56
I'm done. Are you okay?

Emma 1:28:57
Yeah,

Scott Benner 1:29:00
you get me very chatty.

Unknown Speaker 1:29:02
I'm so glad. I

Scott Benner 1:29:03
appreciate this. Thank you so much. Hold on one second. You're just gonna keep talking. You're so amenable.

Emma 1:29:12
I'm I like I said. I don't have anything else going on today. It could be a six hour episode. I

Scott Benner 1:29:17
can't afford to edit a six hour episode. The guy that does these swear words you're gonna have to bleep out? Yeah, I can't even afford to run this one. But okay, hold on a second.

Arden started using a contour meter because of its accuracy, but she continues to use it because it's durable and trustworthy. If you have diabetes you want the contour, next gen blood glucose meter. There's already so many decisions. Let me take this one off your plate. Contour, next.com/juicebox Are you tired of getting a rash from your CGM adhesive? Give the Eversense 365 a try. Eversense. Cgm.com/juicebox, beautiful silicone that they use. It changes every day, keeps it fresh. Not only that, you only have to change the sensor once a year. So, I mean, that's better. Did you know if just one person in your family has type one diabetes, you're up to 15 times more likely to get it too. So screen it like you mean it one blood test. Can spot type one diabetes early. Tap now talk to a doctor or visit screened for type one.com for more info. I can't thank you enough for listening. Please make sure you're subscribed or following in your audio app. I'll be back tomorrow with another episode of The juicebox podcast. I want to thank you so much for listening and remind you please subscribe and follow to the podcast wherever you're listening right now, if it's YouTube, Apple podcast, Spotify, or any other audio app, go hit follow or subscribe, whichever your app allows for and set up those downloads so you never miss an episode, especially in Apple podcasts, go into your settings and choose, download all new episodes. The episode you just heard was professionally edited by wrong way, recording, wrong way, recording.com


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#1351 Caregiver Burnout Series: Part 1

Scott Benner

A three part series about caregiver burnout with Erika Forsyth.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome back to another episode of The juicebox Podcast.

Today. Erica Forsyth is back, and we're going to do a short series on caregiver burnout, this is part one. Please don't forget that nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin to save 40% off of your entire order@cozyearth.com All you have to do is use the offer code juicebox at checkout. That's juicebox at checkout to save 40% at cozy earth.com if you are the caregiver of someone with type one diabetes or have type one yourself, please go to T 1d exchange.org/juicebox and complete the survey. This should take you about 10 minutes, and will really help type one diabetes research. You can help right from your house at T 1d exchange.org/juicebox, Erica Forsyth is a type one herself and a therapist for families with type one diabetes to learn more about her. Go to Erica forsyth.com. Eric, can see you in person or virtually in California and virtually in Oregon, Utah, Vermont and Florida.

This episode of The juicebox podcast is sponsored by ag one drink. Ag one.com/juicebox when you use my link and place your first order, you're going to get a welcome kit, a year supply of vitamin D and five free travel packs. Can you name the only CGM that has only one sensor placement and one warm up period every year? Think about it. It doesn't matter if you can, I can. Eversense 365 is sponsoring this episode of The juicebox podcast, Eversense, cgm.com/juicebox, a year's a long time. The episode you're about to listen to is sponsored by OmniPod and the OmniPod five. Learn more at omnipod.com/juicebox use my links to support the show. Erica. How are you?

Erika Forsyth, MFT, LMFT 2:21
I'm great. Thank you. How are you? You're

Scott Benner 2:25
great, but your power just went out. We just got you back in time to record.

Erika Forsyth, MFT, LMFT 2:28
Yes, good thing.

Scott Benner 2:30
Things are happening now. It's Friday. Day's almost over for me. For you just getting started, but nevertheless, I get a note from you pretty recently, after we saw each other for the first time, Eric and I got to meet in person at the touch by type one event in Orlando, and you had an experience there that gave you an idea for the podcast. Can you tell people about

Erika Forsyth, MFT, LMFT 2:53
it? Yes. Well, first it was, it was such a joy to be at the conference and get to meet you in person, and Jenny in person, and all the wonderful people who run touch by type one. And just being there, I was there to speak in two different seminars, one for teens and one for caregivers, which was an absolute thrill to do. But also I was reminded how important it is to show up and do you know, participate in events like that, personally, because I was reminded of how great it is just to be in the room of hundreds of people, hearing the beep, seeing the things on our arms and being supported just in that way, physically. So I loved that.

Scott Benner 3:35
Do you feel like you got something out of it?

Erika Forsyth, MFT, LMFT 3:39
Yes, I think just, you know, even though I work in this field and I'm and support people living with type one and caregivers and with diabetes in general, I often don't do probably enough for my own benefit within in the type in the diabetes world. And so just the reminder that you're not alone is so powerful, yeah, and that, wow, looking in a room of people who know and understand what you do and how you live on a day to day basis is is so significant that it's almost kind of an intangible, unspeakable, and you know, it's hard to define, but You feel it? Yeah,

Scott Benner 4:20
I kind of found myself wishing I do this one thing. It's not really a talk, it's an hour with kids, and they range in ages, like, there's probably five, six year olds in there, up to, like, 14 or 15. But they don't let the parents in. There's somebody there from the organization and everything, but they want the kids to feel free to speak, and I just used it as an opportunity to let them find kind of commonality between each other. And then it opened them up. And I just started easily going around the room, like, What's it feel like when your blood sugar's high, and then, you know, what's it feel like when you're low? And what do you not like about this? Like, just real simple stuff. But you could see them a young kid, seriously, like a seven year old, looking at. 12 year old and go, wait, you have that thing happens to you too. That happens to me, you know. And then before you knew it, they were asking questions and making pronouncements about things they'd learned about their life and their health and everything. And I was like, wow, these kids, they know way more about this than I think people would give them credit for. It was really, it was eye opening for me, and it was helpful for them. Because, you know, on a basic level, one of the kids was like, Wait, why does my blood sugar get high when I'm at school? And then they all started talking about it. And then they realized about stress and anxiety, pressure, even just going in for a test, could make your blood sugar go up. It was wonderful. This little girl came up to me afterwards. I'm dying to interview her. I don't know who she is. I hope I can figure out who she is. But she came up to me with a notebook, and she asked me to sign it. And I was like, What? What are you? What are you doing here? Like, I don't think my my signature is not worth anything. She goes, No, I took all the notes of the stuff we talked about. I was hoping you would sign it. And she had pages of notes from the conversation. It's so cool. So that

Erika Forsyth, MFT, LMFT 5:58
is so great. It it creates a space for people to feel safe, to share what they're feeling. And I was so also impressed by the teens who were able to open up and just by one person saying something, and then they can say, Gosh, me too. Right? Like I feel that too. I've experienced that too, and that is the validating, normalizing experience that we all crave as humans, but in the diabetes world, that is so powerful. Just

Scott Benner 6:27
to let them say out loud, what feeling low felt like. And they all were like, oh, that's how I like just you could see their faces light up, like, wow, everyone feels this. It's not just me. It was a big deal, you know. So anyway, we were there. We had a great time. We met each other in person for the first time. It's awesome, yes, but you came away from the experience with an idea for the podcast. So what was that? Yes, so

Erika Forsyth, MFT, LMFT 6:50
I in the second seminar, I was, had the privilege to speak to caregivers, and I was, I was also blown away by the vulnerability that that the caregivers were able to share and experience in the in the group. And I thought in the session, it felt kind of a little bit like group therapy at times. And so I felt like, you know what? This might be powerful to bring that the talk that I gave at touch by type one here, and we can create it into a series awesome and essentially that the title and the focus was, you know, the caregiver burden. And I know we've talked about it before in various episodes together, but my hope is that by having kind of a really focused series on the caregiver burden, we would be able to create that experience for you here in the podcast, to validate your experience, to normalize it, and then to hopefully empower you with tools to not to maybe understand what's going on through your caregiver burden experience, and then actually give you some practical tools beyond deep breathing, which are, you know, It's always good and taking a walk, but beyond, beyond, kind of the the stereotypical coping strategies. So yes, well, how

Scott Benner 8:08
do you want to begin? I mean, this is your baby. So what do you think? Okay, well, I

Erika Forsyth, MFT, LMFT 8:13
think, just as we often do, kind of going to the definition starting with like, what is we talk about, the mental load of being a caregiver, we talk about the burden and that it's there's a there's a hardship and a loneliness that comes with it. And when, when we're talking about the caregiver burden, that kind of the true definition is the financial, physical, social, spiritual and emotional or psychological stressors that accompany caring for someone with chronic illness. So those are a lot of different factors that are really significant in life, that are impacted that I know you, you all experience as caregivers. And as a quick note, I also just want to say yes, I am I am a parent. I am a caregiver. My child, one of my my fourth graders, actually sick at home today. But I am not a caregiver to a child with type one. And so I was just even thinking about like, gosh, if she were, if she had type one, and I was trying to do this, I'd be worried about her ketones and all the other things, you know. So I certainly understand what it's like to live with type one for you know, now 34 years, but I don't. I will never pretend that I know what it's like to be in Scott's shoes or to be in any of your shoes as caregivers, but I do have the experience professionally in walking alongside you as a caregiver to a child with type one, and wanted to validate that, I

Scott Benner 9:40
take your point. It's nice of you to say, but it does bear pointing out that just taking care of a child is not the same as taking care of a child who has type one diabetes. It's just, it's different, and it even, like you said, a sick day. I can remember them in my head like ardent sick everything stops anything you had planned that day kind of over now. Well, you know, like, you're going to be super focused on this. You're going to be running around, hopefully everything goes the way you want it to. If it doesn't, am I going to call the doctor? Am I going to, you know, the first time, the first time you realize that your kid has ketones, but their blood sugar is 85 but they need insulin. Fries your mind. You're like, what am I supposed to do? 85 doesn't need insulin, but ketones need insulin. Yeah, it's not, it's not for the fatal heart, that's for sure. Sorry, yeah, today's episode of The juicebox podcast is sponsored by OmniPod. And before I tell you about OmniPod, the device, I'd like to tell you about OmniPod, the company. I approached OmniPod in 2015 and asked them to buy an ad on a podcast that I hadn't even begun to make yet because the podcast didn't have any listeners. All I could promise them was that I was going to try to help people living with type one diabetes, and that was enough for OmniPod. They bought their first ad, and I used that money to support myself while I was growing the juicebox podcast, you might even say that OmniPod is the firm foundation of the juicebox podcast, and it's actually the firm foundation of how my daughter manages her type one diabetes every day. Omnipod.com/juicebox whether you want the OmniPod five or the OmniPod dash. Using my link, let's OmniPod know what a good decision they made in 2015 and continue to make to this day. OmniPod is easy to use, easy to fill, easy to wear. And I know that because my daughter has been wearing one every day since she was four years old, and she will be 20 this year, there is not enough time in an ad for me to tell you everything that I know about OmniPod, but please take a look omnipod.com/juicebox I think OmniPod could be a good friend to you, just like it has been to my daughter and my family. This episode of The juicebox podcast is sponsored by Eversense 365 and just as the name says, it lasts for a full year, imagine for a second a CGM with just one sensor placement and one warm up period every year. Imagine a sensor that has exceptional accuracy over that year and is actually the most accurate CGM in the low range that you can get. What if I told you that this sensor had no risk of falling off or being knocked off? That may seem too good to be true, but I'm not even done telling you about it yet. The Eversense 365 has essentially no compression lows. It features incredibly gentle adhesive for its transmitter. You can take the transmitter off when you don't want to wear your CGM and put it right back on without having to waste a sensor or go through another warm up period. The app works with iOS and Android, even Apple Watch. You can manage your diabetes instead of your CGM with the Eversense 365 learn more and get started today at Eversense cgm.com/juicebox, one, year one CGM,

Erika Forsyth, MFT, LMFT 13:04
basically what we're going to do in in my preparation for the talk in the conference, I did some research, and I was curious to like what what research is out there, what tools from research are already out there to support caregivers for children with type one and coincidentally, there was research that was conducted and published just in March of 2024, and the title is called caregiver burden among parents of Children with type one diabetes, a qualitative scoping review. So these researchers, I'll just say them once here, so we won't repeat them. Azimi Johnson, Campbell and Monte Santi said, You know what we're going to do? We're going to look at all of the research that has ever been conducted on caregiver burden from 1995 to 2021, and they actually gathered, I think it was 1900 papers from there they, you know, had reduced it down through various filters of duplicates, but they and they wanted to ensure that every article identified all of those stressors that we that we discussed for caregiver burden. So they landed with 18 studies. And so from these 18 studies, they discovered six themes that are common and consistent through all of their research. Okay, so these themes are we're gonna what we're gonna do, and we'll start with the first one today, and then we'll break them down with each episode. So the six themes from all of these, from all the studies, are this. Number one, experiencing chronic sorrow. Number two, responsibility for glucose, highs and lows. Number three, managing T, 1d and night time. And sleep disturbances. Number four, making career sacrifices and choices to optimize T Wendy care. Number five, navigating social experiences post diagnosis and number six, isolation and stigma, and as a result of that, they're also everyone's endorsing, how much support they're finding from social support online. So I'm sure you all can relate, and all these things resonate. So from these six themes, we're going to discuss them as barriers to self care. Like, why is it we're going to look at the question, why is it so hard to create time, to take time for yourself as a caregiver? And so through that lens, we're going to discuss these themes as barriers to self care. And then after each barrier, we're going to discuss some tools, okay? That will help you find ways to, you know, to understand and then to make some changes, however big or small, to taking care of yourself. How does that

Scott Benner 16:11
sound? That sounds like a perfect plan. Excellent. Okay, yeah. Okay.

Erika Forsyth, MFT, LMFT 16:15
So what I'm going to do, so the for burden one experiencing chronic sorrow, I'm going to read a quote that is, this is all taken from this the research. Okay, so experiencing chronic sorrow as time goes by. There is not the same drama about the whole thing, but I still feel the despair and the loneliness when I let it come to me.

Scott Benner 16:39
I know that feeling right? You hold it, you kind of hold it all at bay on the other side of a wall somewhere, right? Because if you keep experiencing it over and over again, it just it crushes you. Yes,

Erika Forsyth, MFT, LMFT 16:51
yeah. So we know, and all across all the studies, and I know all the people you've interviewed and the people they work with, there's that initial sense of shock that we've talked about, that you've experienced, the anxiety, maybe guilt. What you know, could I have done anything to prevent this despair, the sense of overwhelm, feeling sad, angry, a lot of self doubt, as you're trying to learn so you're feeling all of that intense sadness, anger, grief, but then you also are forced to have to learn and educate, and so that is that initial shock and loss is very intense. Yeah, it's the the loss

Scott Benner 17:32
piece too. You think you're not sure what your life was supposed to be, but you're positive it's not going to be that. Now, you know what I mean, like the loss of possibility, maybe, or freedom? I don't know, but it feels like I've never, not heard anyone talk about it that way. You know,

Erika Forsyth, MFT, LMFT 17:49
I think I shared this in the in the talk, but I'm also remembering that you once said no parent ever gives birth or adopts or however you have your child with the expectation that they're eventually going to be diagnosed with a chronic illness like you never. That's never in your you

Scott Benner 18:07
never, yeah, there's no planning for that. No matter how thoughtful of a person you are, you never sit around going, oh my god, we're pregnant. You know what'll probably happen? You know, in year 17, they'll have a car accident, and like you don't. That's not how it works, you know. So you have all this hope and diabetes, somehow it doesn't just ding the hope, it dashes it completely. It just feels like it just removes all of it, and then you have to build back and realize that's not actually the case. But boy, it feels like that at first, yes,

Erika Forsyth, MFT, LMFT 18:40
and go ahead. No,

Scott Benner 18:42
I just upset. I'm already upset.

Erika Forsyth, MFT, LMFT 18:45
I don't want to be upset. And I think that's actually a good point. You know, as you are listening to this episode in this series, be mindful of maybe where you are in the day. And if it does, if this does trigger or evoke emotions. I do encourage you to let them come out, if you are able to, if you can give yourself that time and space in this kind of chronic sorrow. So we have this initial shock grief and loss. With that is the disenfranchised grief that I'm pretty sure we've talked about before, but I think it's important to go back to that disenfranchised grief kind of the definition is, it's also known as hidden grief or sorrow, and it can refer to any grief that goes unacknowledged or unvalidated by social norms or by your family or your friends, this kind of grief is often minimized or not understood by others, which makes it particularly hard to process and work through. And this type of grief is really is so common with those you know with us in the in the diabetes community. Because there is so much misunderstanding, you're suffering, you're grieving, and you want people to know, but you don't quite know how to communicate. That part, there's like this duality, right? But you and even when you try to communicate it, they don't quite ever get it. And then that leads you to maybe even feeling worse and more alone. And

Scott Benner 20:23
if you're caught in that, in that vortex, when you see a late night comedian, for example, like use diabetes as a, you know, in a joke line, or something like that, yes, that's where you get that feeling of like being minimized, dismissed, or just that unrecognized social problem. So that's where that comes from. Like, I need people to understand what this is, so that What the Why do I need them to understand so I can get past this part from me.

Erika Forsyth, MFT, LMFT 20:51
We want people to understand because that will decrease that feeling of isolation, okay? And but then we realized it's really hard to fully understand this severity and intensity of what it's like to care give and

Scott Benner 21:09
so you're isolated, and you feel helpless to explain it to somebody. Yes, so if they just didn't make that joke, you'd feel less isolated, and the pressure to explain it might be alleviated as well.

Erika Forsyth, MFT, LMFT 21:23
Yes, yeah. I mean, which is why, consequently, the community is so important for us, right? Because we do have that immediate understanding and decrease isolation and but in anything that you're going through. You want people, you want support, and you want people to know, but when you find that it's challenging or that they just can't quite get it, you then come to this point of, okay, how am I going to move through this? Right? Like, am I going to keep trying? And I think that's that's part of your experiencing this chronic sorrow and chronic grief is that journey of, how do I share? How do I be vulnerable so that people know and I'm talking even like family members, how do people know that I'm struggling without feeling like I have to share with them all the nuances of T, 1d, or diabetes. How do I let them know where I'm at emotionally and be vulnerable enough so that they can support me that I mean, that that's and that's a journey, that's a personal journey. So just noticing that yes, so

Scott Benner 22:36
you can get emotional validation from them. Is that what you're looking at. Like, yes,

Erika Forsyth, MFT, LMFT 22:41
emotional validation, like, I'm here for you. Like, wow. And, and we'll, we'll get to these more, even more specific tools in the in the social episode. But this is part of it. Is kind of trying to figure out, what can I say that elicits the response I need, and when I'm not getting it? What do I do next? How do I educate without having to, like, re traumatize myself, or having to re educate everybody and get the support I need?

Scott Benner 23:07
Yeah, I mean, once people really see you and there's affirmation about like, who you are and what you're going through, once they understand it, my expectation would be that they could be empathetic about it, and that probably begins a new process for you, right? Like, once, once those other people like, oh, they get it. They understand. They're not fighting with me anymore. It's not like, Oh, you're always been so difficult. I actually heard somebody say that recently, just in a social media post, this girl who's in a wheelchair, I didn't even know what for, and she was saying that her family says, Oh, you're always so dramatic. I'm like, okay, like, you know what I mean? Like, and she's, you know, she's like, I'm just trying to share my situation with people, and they just see me as, like, looking for attention. She's like, I don't want this attention. I this is not something I wanted, but it's interesting that you can get that pushback. I'm just I'm so stuck on the idea that I need those other people to understand and to be empathetic, but I can't keep putting myself out over and over again to explain it to them. Is that where the rub comes?

Erika Forsyth, MFT, LMFT 24:16
Because, okay, we're and I'm talking this could be at any stage in in your child's diagnosis, when you are struggling and you're exhausted and you want people to know, because maybe it's not even a want. Maybe you just need people like you just you need the emotional support. You just need like, Hey, I don't understand what's going on, but I see that you're really struggling, and I'm here for you. And it might even be hard to communicate that much to somebody. And it's not necessarily like you want people to know that it's hard. But when someone, and this is what this is exactly what is disenfranchised grief is that because. Is they don't know how hard it is. You might not ever get that, yeah, extreme, that validation that you really are needing and wanting, and that is hard. That's hard, yeah,

Scott Benner 25:13
needing biologically too. I mean, we're humans, are we're social creatures, right? So as long as the as long as your social structure is about what people expect it to be, then they're accepting of you. But then once the thing becomes too different or scary or unknown, or even some people get I've seen people have unreasonable fear that someone's illness will make its way to them. I can't tell you who this is, but I know a person who has a story of getting into a pool with cancer and other people getting out of the pool like that. And so now you don't get that like that, just biological need fulfilled for connection, for society, and, you know, a social group.

Erika Forsyth, MFT, LMFT 25:55
Yeah, yes. I mean and that. And this is why, if this, if this is particularly challenging for you to work through, to process this, the grief and the isolation, that's why group therapy, that's right. Group conferences, you know, are so significant and powerful. Yeah, it's just, it's just hard, and it's not impossible to work through, right? But I think it's important to have a name to it. If that's what you're noticing and experiencing, is feeling the grief, but then also feeling isolated and alone in it, that that is the disenfranchised grief.

Scott Benner 26:33
Do you think some people get stuck there forever?

Unknown Speaker 26:37
Gosh, that's a possibly. Yeah, and

Scott Benner 26:40
then it affects everything. You don't realize that. That's when you start seeing yourself becoming, I don't know, I'm not sure what the word is, but cantankerous, and just always thinking everybody's coming for you. And that whole piece that I do see sometimes, right, where some people are just so backed into a corner that, you know, and by themselves, that everything that comes towards them feels like a thing they just have to run from or attack back at, even if it's not attacking them. Yeah, you've seen that with people with type one who are older, right?

Erika Forsyth, MFT, LMFT 27:12
Yes, there's, there's a reason why, right, that perhaps you're stuck in that space. And whether that's past trauma, and we'll, we're not going to go into all of that. We'll plug our resilience series here. Yeah, if you, if this is you're noticing, gosh, I feel like I'm really stuck in this spot. There's a reason why. But if you're noticing that you're filled with the constant sense of resentment and bitterness and just you're ang full of anger, again, that's really normal at times. So not just not to dismiss that or minimize that, but if you're feeling stuck, and you've been in that place for years and years and years and years and years, I would encourage you to get to do some analysis around that. And what is that? What is keeping you in that stuck place? It's hard, it's hard step to acknowledge and to take

Scott Benner 28:01
when we're doing these, I'm always worried that I'm taking you from where you want to be. So I know this is good, okay, all right.

Erika Forsyth, MFT, LMFT 28:07
Well, this is, you know, these are points that I would I made in my talk, but because I don't have you know, you as a sounding board, this will make it more, you know, probably rich, richer, hopefully. Well, I'm glad the last point before we get into the tools for the chronic grief is that we know, we all know that grief is not linear, even though we know there are the stages, the five stages of grief. And while we can get to the place of acceptance that will look different at different stages of your journey with diabetes as a caregiver, and perhaps you you get, you kind of get through, I like saying, get through. And kind of, instead of getting over the initial diagnosis, you kind of get through those initial stages of shock and loss. And then you might feel like, okay, we've got, we've got a rhythm going. And then go back to the six your child's sick for the first time, your child goes to the birthday party for the first time, or goes through puberty or off to call, you know, all these small and big changes where you feel like you're the comfort and the security and the safety that you felt in managing and managing the diabetes and also managing emotions felt very secure. And then you go through this first time, and then that can just that sometimes it can set you right back to where you were. And this is for all the reasons that we talked about in the in the resilience series as well.

Scott Benner 29:32
Oh, for sure, I see it online all the time. There's hallmarks in people's lives, and those who are struggling are, for sure, going to be set off by them the first time they have to go through TSA with diabetes.

Unknown Speaker 29:44
Oh yes, I

Scott Benner 29:45
have to get an x ray. I don't know what to do. Do I take this off? Is the company going to really charge me for another one? Like it just falls off a cliff, like the worry and the anger and everything and the fear birthday parties? I used to play softball with my buddies, and now I don't think I can. Anymore I ride a motorcycle. Can I still do that? Like it just every little thing that pops up for people, it just over and over again. It feels like it starts over. And when you're sharing online in an open space, it's also interesting to see what people decide to come in and be supportive and say, Oh, I've been through that. Here's my support. There are people who are like, Oh, that's a thing I've been worried about, and now they're hoping maybe they can learn about it before it actually happened to them. Then there is this interesting thing that happens sometimes, if a person's been in the community too long and they've seen too many people say, I don't know how to bolus for a cupcake at a birthday party, they can almost get frustrated. They'll lose sight of the fact that this person asking this question, this is the first time this has happened to them. They are not everybody else. It's interesting, you know what I mean? Because suddenly you get, you get measured with I already saw people ask this question three weeks ago, and I'm like, that's not how a Facebook group works. They didn't see that, you know, like, like, this is the this is the time when they're going through it. And it always brings me some measure of comfort, because I think the things that are happening I see happen over and over again to people and over and over like, what if we could get to them with this information before the fear hit them? Then maybe it would be easier to deal with and quicker and maybe not as painful. So that's kind of where I come from when I'm making content.

Erika Forsyth, MFT, LMFT 31:23
But yeah, yes, we are all on our different stage and age in our relationship with diabetes, yeah, for sure. And we want to offer support and encouragement, and we always have to hold where you're you know, where am I in this journey? Where is this person coming from? And that could be hard to do if we're not pausing. No,

Scott Benner 31:46
no. This line here that you have in your note, grief is not linear. Intensity of grief can pop up at any time, and there's a lot of and there's first times for a lot of different things. It just just kept making me feel, made me just think about over and over again. Like, I don't know that people would understand how valuable the private group is for me, feeding the podcast, right? Because I it's almost like, sometimes it's almost like, you guys are all in a room together, and I'm like, behind a I'm behind like, a one way mirror. And like, you know, get to say, like, oh, look, that happens all the time, like we have lists of things you wouldn't imagine. One I just saw today was common questions that people have online, common fears that we keep lists of all that stuff to try to inform the podcast. So I didn't mean to make anybody feel like they're like a test subject on the other side of a piece of one way glass, but, but when they're willing to live their life out like that, besides all the great communal things that happen and the support that happens in the social setting, you're actually helping me to make a better podcast as well. So pretty great.

Erika Forsyth, MFT, LMFT 32:52
That is great. Yeah, good. So

Scott Benner 32:54
now we got to get to the schools, and we have all this sorrow, what are we going to do with it? Yes,

Erika Forsyth, MFT, LMFT 32:58
okay, so what? So, yes, what can we do? What can we do with this, this chronic sorrow, because you're caregiving for a chronic illness. So grieving without a timeline is the major tool here, and then we're going to go through some specific items. One of the things that I hear the most is having an expectation around when the grief should be over, and that then lends itself to shame, right? Like, okay, it's been a week, or it's been a month, it's been six months, it's been a year. We should be getting it by now. Why we should be and again, I'm holding both of these. We should be getting it now the diabetes management side, and I should be feeling better. I shouldn't be grieving as much. I shouldn't be crying as much. I shouldn't be lamenting as much. So not only are you feeling the primary emotion, which is the grief and loss, you're then piling on shame that you should be in a different spot, and that is keeping yourself kind of stuck in that cycle. I know this can feel complicated, right? Because you're saying, Well, it's a chronic illness. There's chronic sorrow, but don't put a pressure on your don't put a timeline or expectation around when you should be done. And so it is important to hold that loosely and give yourself that freedom to be on your own journey. And again, it might be more challenging for you and your own story because of your past history and past trauma. And so just by allowing yourself to say, okay, yes, it's been a year. It's been two years, and yes, maybe I feel better, but it still feels hard. Now we'll get into kind of the nuances of, you know, what's right, what's appropriate, but I think you you know, like, how are you functioning? Like, noticing some of the things that we're going to talk to right about right now, but I want to pause. Did you want to say anything?

Scott Benner 34:55
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Erika Forsyth, MFT, LMFT 36:48
me. I'm sorry that this is, yes, it is this is intense, this is heavy. This is what it's but it's real.

Scott Benner 36:55
But I do appreciate what you said about the timeline thing that happened to me, and now I'm acting like, you know, but it probably happens to everybody, like, Arden's one year anniversary. I don't know what I thought, but I thought I was going to wake up and magically understand diabetes that day. I don't know why we do that with arbitrary like, dates and times. And then I thought, well, one year wasn't enough. It'll be two years. And then the second year came, and I was like, I am not much better at this than I was last year. So, yeah, that's it's very important. But how do you, how do you give yourself like that loose hold on that idea that there's no timeline but guard against falling into an abyss you can't climb back out of either right?

Erika Forsyth, MFT, LMFT 37:35
Okay, great, great question. Scott, so I'm going to encourage you to notice a few things here in your in your thought process, and increase some awareness. So as we've already mentioned, you know, no parent envisions or expects the loss that's going to come, whatever that may be. But obviously, in this instance, we're talking about diabetes, and I encourage you, a lot of times, what I hear is the grief or the life that your child had before diagnosis, and then the grief and anticipation of a of a life that's going to be riddled with challenge and medical trauma for their child. And so the from the parents perspective, you know, you're you're grieving what was, and then you're anticipating a really hard life for your child, because that's all you maybe know and are feeling in the moment. And sometimes, then we, as parents, we put our own emotion or grief onto our child, not, you know, mistakenly not knowing or or we kind of feel like maybe we're doing it empathically. We feel like I'm, I'm going to connect with my child and worry for them and grieve for them, that it's going to be hard for them to play sport, it's going to be hard for them to go to college, it's going to be hard for them to find a partner. You know, all these things that, as parents, we worry about, I totally understand that, but then we have the diabetes there, and we project kind of worst case scenarios, and that's coming from the grief. And so I encourage caregivers, as you're grieving, to be mindful of how much is your own grief, and separate your grief from your child's journey and your child's relationship with diabetes and their own grief

Scott Benner 39:25
because they didn't have the same expectations for their life that you had, right? Exactly, so they're not judging their situation based on your expectations. Yes, they might not be nearly as upset as you are.

Erika Forsyth, MFT, LMFT 39:39
Yes. Ah, okay, that might not. How do you stop

Scott Benner 39:45
yourself doing that?

Erika Forsyth, MFT, LMFT 39:47
That might not make you feel better in the moment, right? But I think through a process of awareness, whether that's through journaling, through and, you know, obviously. Through therapy to separate your grief and your relationship with diabetes from your child's and obviously this is going to be so different based on the age and stage of your child at diagnosis, you will be surprised how much your child remembers before diagnosis. I will speak for I was 12. I don't remember what it was like to not have diabetes prior to 12, right? Some kids might remember who were diagnosed at five. They might remember, you know, everyone is different, so how do you separate it again? It's it's being mindful every time you're thinking, Oh, my child, are they gonna base? Are they gonna all the things I just said? Are they gonna play sports? Are they gonna find a partner? Are they gonna do all these things that I envision them to have this six? Have this successful, thriving life, that that is your grief and your worry and your they aren't feeling that when you start to feel and be mindful that gosh, is my child going to feel this? Their child is not going to feel that they mean, they may have, they may have challenges,

Scott Benner 41:00
yeah, but they're not gonna be overwhelmed the way you are, because expectation is really the it's the enemy here, right? Like, because you don't recognize that you had all the expectations you had the day before diabetes, and that most of the things you thought were going to happen, or the way you thought they were going to happen, they're not actually going to happen that way, but that gets to unfold slowly over years and decades, and so you adjust as you go, Oh, I thought my kid was going to play soccer because I played soccer, but it turns out they really love baseball because sports where you can't use your hands aren't sports. I'm sorry. I was just kidding. And like, so that adjustment happens when they're seven, and you go, Okay, well, I wanted to play soccer about you play softball anyway. It's okay, no big deal, right? Like, but when it all comes in one shot and your brain starts rolling through all of the expectations you had, you don't stop to tell yourself, oh, this wasn't actually going to go the way I thought it was going to anyway. So this isn't that big of a deal. You just say this is what life was going to be, and now it's not going to be that. And so we give like it said, it's all it's all ruined, you know what I mean? And then that's how you feel. But that's not the case. Like people are going to come help you, if you're in this community, they're going to say to you, don't worry. I did this with diabetes when I grew up, or I did that, or I drove here, like, you have any idea? I just shared Arden's graph one time while she drove to college, and it was an all day drive. She drove like, 12 hours one day, and so many people were like, like, adults who came back and said to me, this is so encouraging to me, I won't go on long drives. I'm like, oh. And I thought, God, you don't go. You're an adult. They won't go on a long drive because they have diabetes. And then just seeing some kid leave for college, and they're like, Oh, she did it. And then they just reset their expectation, and then then they do it. It's awesome. Actually, I'm sorry. I feel like I got you off track. Yes,

Erika Forsyth, MFT, LMFT 42:58
no, no, it's good. It's good. And we'll, that's a good point. We'll, we'll expound on that. Okay, going back to your question of, you know, giving yourself permission to grieve without a timeline, what do you do? How do you kind of keep yourself in check, right? Like, how do you know, and so noticing, I encourage you to notice the amount of time, like, literal time that you are grieving privately and publicly and again, this can be at any stage from diagnosis. And I told the story the conference I shared here again to shortly after, my brother was also diagnosed with type one, two years after I was and I remember we went out to a restaurant, and the hostess was walking us to a table, and she directed us to a table, and my mom said, We can't sit there. My children, both my children, have type one. And so she we kept walking us to another table, and I remember looking at my brother, and I remember being horrified, and just like, why did she tell this person what there's nothing to do about the table, like, what is, you know, I was just like, solely embarrassed and probably pretty angry too at the time, and upon reflection, I now think and believe that my mom was grieving. She obviously had nothing to do. She

Scott Benner 44:19
just wanted to tell somebody, I'm struggling. My kids are struggling. We have problems like, be empathetic with me, yeah,

Erika Forsyth, MFT, LMFT 44:28
like she, I mean, maybe she didn't like the table where it was just like, um,

Scott Benner 44:33
I got a card who says type one on it. We don't have to sit in a booth like a common person, by the way. I prefer a booth, but

Erika Forsyth, MFT, LMFT 44:39
I'm sure, I'm sure she, she probably didn't like the table, but it came out as both my children have type one and feel

Scott Benner 44:47
bad for me and give me the table I want. I gotcha. I got so

Erika Forsyth, MFT, LMFT 44:51
she, I mean, and this happens right? Like, we tell when we are grieving and we're kind of like just oozing out. And flooding over and again. This is normal when we are in a really intense situation. For a lot of people, a lot of people will hold everything in and not say anything, and a lot of us will will share everything to anyone who can listen, and she was grieving I needed to tell people. And didn't, you know was landing in different places, yeah, and so just noticing, are who are you? Who are you talking to? Are you talking about it all the time? Are you reading? Are you going, you know, again, the Facebook group, other social media, are you going there to find support or to share your story and receive some validation and normalization of your experience that is so healthy and probably really powerful for you in the moment. And then are you finding yourself hours later reading through traumatic story after traumatic story. So perhaps your initial motivation is to go to a community who understands you, to be validated, supported. You receive that. But then we're humans. We get, we get sucked in, and then, then we're, then we're experiencing kind of more vicarious trauma and reliving everyone else's trauma. And so just notice, how long are you doing that? What is the impact you don't

Scott Benner 46:28
want it to turn into disaster porn for yourself, where you're just like, Oh, I've worked through my problem. Now let me go relive it again and again and again and again. There's a difference between community and searching out those stories that why do people want to feel badly, though? Is it because at least they know how it works? I

Erika Forsyth, MFT, LMFT 46:47
think it's initially you feel validated because you're saying, oh, this person went through that too. This Karen is struggling with the same issue I am. Yeah, and that feels good, because then you feel that isolation is decreasing and decreasing and simultaneously, depending on how much time you're then exposed to can you become consumed and overwhelmed by all everyone else's trauma? Yeah, right. So there it is this. It's a sweet balance of finding it just going to support groups in person. I

Scott Benner 47:22
think in the 70s, my dad would have said you have to pull your head out of your own ass at some point. Is that, is that what you're saying? No, of course, that

Erika Forsyth, MFT, LMFT 47:34
is not what I'm saying. I think it's, it's, you know, noticing then this is, it is hard to and even as I say this, like notice your thoughts increasing that awareness of what you're doing is hard to do when you're exhausted and trying to just get through the day and trying to manage it all, yeah, not just your child's diabetes, to manage it all, so that even in and of itself may feel challenging, and the awareness piece of noticing how much you're talking about it, reading about it, crying about it, consuming yourself with it. There is a time and place for that. And notice if you feel like you're you're stuck in it, yeah. Also, you can

Scott Benner 48:15
just look at your kids while you're talking to other people, because if you've been telling the same story over and over again, they will be looking at you cross eyed. So, you know, has everyone not been in that situation where they're like, why is mom telling that person so much like, I have that story from when I was a kid. I was like, What is she's really oversharing here, yes, and I Yeah, I hear you. Yes. Okay, yeah. I just want to say like that to me, sounds like the most difficult part of all this, because I don't imagine that most people are standing up and saying, I'm gonna go do something now that is really unhealthy for me. Like, you know, you don't know you're doing it when you're doing it, to be aware of it to, I guess, helps you see it eventually. And then maybe then you can, you know, curb it somehow. But I'm sorry, go ahead.

Erika Forsyth, MFT, LMFT 49:01
Yes, it is. It is hard, and in the moment, you're dysfunctioning from moment to moment, day to day. Yeah. So these are, these are tools that, when you have the bandwidth to implement and start to noticing, what are the thoughts, what are my actions, and how are they impacting how I feel one thing that I know we've talked about before is the dear diabetes letter that I think is powerful. Whether you're living with diabetes or you're caregiving, doesn't matter what type, but oftentimes this goes back to you want people to know how hard it is to live with it, to care, give, and they don't really understand, and you hold a lot of feelings towards the actual diabetes, but it can't, can't talk back to us, you know, right? And so this is a tool that I know many people have found to be successful, to do not just once, but monthly. Or annually, and you're writing, you are literally writing a letter, dear diabetes, comma and let it all come out. Sometimes it'll be neutral, sometimes it'll be full of hate and rage and anger. Sometimes it'll be sadness. And I think if you do practice this kind of in a ritual way. If it feels helpful, it's interesting to always look back, because I think we often forget that we have healed or we have grown. And so when you can look back and be like, Wow, two years ago, I was in a real I really hated diabetes. Yeah, I tell you now all

Scott Benner 50:37
the time, a year from now, you will not recognize yourself today.

Erika Forsyth, MFT, LMFT 50:41
You do say that, yeah, it's just true. I'm sorry. And if we know it's it's so true, but we forget. We forget because it's hard to remember where you were and where you are today for sure. And so I think that can be a really effective oftentimes, what comes out in these letters, too, is an anger and kind of disillusionment with people's when they if they have a faith or belief in God or kind of the universe, whoever your relationship is to a higher power, if you have that, that often comes out in these letters, and people are surprised by that, and that kind of goes along with the expectation of what your life is going to look like.

Scott Benner 51:23
I mean, that's you don't even think about that, that that extra layer of it's not just like, oh, I wanted my kid to be able to do this thing, or I didn't want to be up in the middle of the night dealing with something. But if you have those beliefs, then somehow this, this entity, decided to screw you right, like that's, that's what it feels like, yeah, and that's got to be hard to deal with too. Okay, all right,

Erika Forsyth, MFT, LMFT 51:49
okay. The practical tool, the dear diabetes letter, the kind of psychological, emotional tool of noticing your thoughts and your actions, I have also found through, you know, professional work and also listening to all the stories on the podcast, that your past really does impact how you cope and with with the diabetes. And I have found that if you you know if you have past trauma or even specific experiences with diabetes that impacts your not only your grieving, but also your like, hope and belief that things are going to get better or or that it's just going to always be hard. Conversely, if, for example, when I work with caregivers who have type one and then their children have type one, it's a different experience because they have the belief and hope that they've lived with it. There's still grief. It's still hard, right? But it's different. And even for caregivers who have partners or other family members who have type one or another form of diabetes when their child is diagnosed and it's positive and it's positive, their grief is still there and present, but there's a hope that's easier to grab onto, as opposed to when you have a negative either experience with diabetes or a negative either medical trauma or trauma in general. And so I know, I know again, we've, we've spoken into that piece a lot, but I think it's important to park it here too.

Scott Benner 53:31
I'd be remiss not to say that when we did that four part series about resilience, how much I learned about past trauma and how it affects who you are in the future. Really, I thought that was awesome. But what you put together for that one, and so I'll throw it in here. It's episode 1229, 1235, 1245, and 1250, I mean, if you want to look into why you might do what you do, or react the way you react, it's, it's just super helpful for that, I think,

Erika Forsyth, MFT, LMFT 53:59
thank you. Yeah, I think it was, there's a lot of content there that might help you kind of understand and at this point that we're talking about right here, yeah, yes. And then if you are having difficulty, even having the bandwidth, time energy to notice your grief, obviously, having, you know, sessions with therapists or mentors, and if you feel safe enough, asking close family or friends to reflect back to you how you're doing. To say, it's a vulnerable question. To say, How am I doing with my grief? Like, how do you feel like I'm doing? And again, this is it's I want to make sure that you ask that in a in a relationship that feels safe insecure, a

Scott Benner 54:50
kind truth teller who understands the big picture, not just somebody who's going to look at you go, you're being dramatic, like that kind of

Erika Forsyth, MFT, LMFT 54:57
thing. Yeah, yes, right. So I'm talking. You know, mentors, pastoral counselors, therapists, maybe a really close family member that has walked with you for a long time, somebody who understands, somebody who understands and also knows you. Because at some point you might be healing in your grief. Again, we know that it's chronic, but you might be healing, and you might not even be aware of that. And they could say, no, actually, look, you, you were doing X, Y and Z, and you weren't able to do that last month or last year, yeah. Or they might say, gosh, you know what? I think it seems like you're you're still in a really hard and challenging place, and that might be because I don't know what's going on, but how can I help you? So again, it's a vulnerable question to ask non professionals, but it can be really powerful, right?

Scott Benner 55:48
Yeah, definitely vet out the person you're going to ask that from, if it's not a professional person, who can, you know, be thoughtful, a third party, that kind of thing, like, Yes, don't be surprised too. If either, if your spouse is either great, like at this, or not great at it, because they're also going through the same thing you're going through, but they experience it differently than you do, because when they were eight, something different happened to them than what happened to you when you were eight. And so it's, I know people, there probably are people who hear that think, oh, that's like therapy mumbo jumbo. But man, that I'm telling you that resilience series, I was like, Oh, my God, that. What's that list that the 10? How come I can't think of the name of the list of the things that, if you have a certain a number of them, have happened to you in the past. Oh,

Erika Forsyth, MFT, LMFT 56:36
the aces, yes, the adverse childhood experiences. Yeah. That

Scott Benner 56:41
thing opened my eyes. And I have more than although I couldn't remember the name of it right now, I have more than one time, more than a dozen times in my life, pulled this thing up in front of other people and gone through and went, Hey, have you ever experienced emotional, physical or sexual abuse? How about neglect? Emotional or physical and like, gone through it like that. And you can see people ticking in their heads, and then, you know, they come up with, like, Oh, I've got, like, four things on this list, and you and they go, oh, oh, yeah, oh, okay. And then they all of a sudden, see their situation, really fascinating. So anyway, yes, think we're to the end,

Erika Forsyth, MFT, LMFT 57:16
but I don't want to we're to the end. We are to the end. Yes,

Scott Benner 57:19
I can't. Thank you enough. Seriously, this is wonderful. I was so excited when you reached out about this. So thank you.

Erika Forsyth, MFT, LMFT 57:24
You're welcome. I hope it's hope it's helpful. Tell people where they can find you. Erica, forsythe.com,

Scott Benner 57:32
you have a website. Everybody's got a website, Erica, but yours is awesome. They should go check it out. That is my website. Yes, you can help people virtually in what states,

Erika Forsyth, MFT, LMFT 57:41
California, Oregon, Utah, Vermont and Florida. And

Scott Benner 57:46
you can see people in person if they're Cal California

Erika Forsyth, MFT, LMFT 57:49
or California. Yeah, I have an office in Southern California in Pasadena.

Scott Benner 57:53
Thank you so much.

Erika Forsyth, MFT, LMFT 57:54
I appreciate you.

Scott Benner 58:03
I'd like to thank the Eversense 365 for sponsoring this episode of The juicebox podcast, and remind you that if you want the only sensor that gets inserted once a year and not every 14 days, you want the Eversense CGM. Eversense cgm.com/juicebox, one year. One CGM, a huge thank you to one of today's sponsors. AG, one drink. AG, one.com/juicebox you can start your day the same way I do with a delicious drink of Ag, one, OmniPod five sponsored this episode of The juicebox podcast. Learn more and get started today at omnipod.com/juicebox, links in the show notes. Links at juicebox podcast.com. If you're looking for community around type one diabetes, check out the juicebox podcast. Private, Facebook group, juicebox podcast, type one diabetes, but everybody is welcome type one, type two, gestational loved ones. It doesn't matter to me, if you're impacted by diabetes and you're looking for support, comfort or community, check out juicebox podcast, type one diabetes on Facebook, if you or a loved one was just diagnosed with type one diabetes, and you're looking for some fresh perspective. The bold beginning series from the juicebox podcast is a terrific place to start. That series is with myself and Jenny Smith. Jenny is a CD CES, a registered dietitian and a type one for over 35 years, and in the bowl beginning series, Jenny and I are going to answer the questions that most people have after a type one diabetes diagnosis. The series begins at episode 698, in your podcast player, or you can go to juicebox podcast.com and click on bold beginnings in the menu. Are you starting to see patterns, but you can't quite make sense of them. You're like, Oh, if I bolus here, this happens, but I don't know what to do. Should I put in a little less? A little more if? You're starting to have those thoughts, you're starting to think this isn't going the way the doctor said it would. I think I see something here, but I can't be sure. Once you're having those thoughts, you're ready for the diabetes Pro Tip series from the juicebox podcast. It begins at Episode 1000 you can also find it at juicebox podcast.com up in the menu, and you can find a list in the private Facebook group. Just check right under the featured tab at the top, it'll show you lists of a ton of stuff, including the Pro Tip series, which runs from episode 1000 to 1025 I can't thank you enough for listening. Please make sure you're subscribed or following in your audio app. I'll be back tomorrow with another episode of The juicebox podcast. Hey, what's up, everybody? If you've noticed that the podcast sounds better, and you're thinking like, how does that happen? What you're hearing is Rob at wrong way recording, doing his magic to these files. So if you want him to do his magic to you, wrongway recording.com, you got a podcast. You want somebody to edit it. You want rob you.


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