#1348 Community Spotlight: Nightscout Foundation
Talking about places and people who help.
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Scott Benner 0:00
Hello friends and welcome back to the next episode of The Juicebox Podcast.
I'm back again with another community spotlight episode. They're short, but very informative, pointing out some people out in the community doing good works. Today, we're going to talk about the night Scout foundation and namie.org nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan. If you or a loved one was just diagnosed with type one diabetes, and you're looking for some fresh perspective. The bold beginning series from the Juicebox podcast is a terrific place to start. That series is with myself and Jenny Smith. Jenny is a CD CES, a registered dietitian and a type one for over 35 years, and in the bowl beginning series, Jenny and I are going to answer the questions that most people have after a type one diabetes diagnosis. The series begins at episode 698, in your podcast player. Or you can go to Juicebox podcast.com and click on bold beginnings in the menu. If you're looking for community around type one diabetes, check out the Juicebox podcast, private, Facebook group, Juicebox podcast, type one diabetes, but everybody is welcome. Type one, type two, gestational loved ones. It doesn't matter to me. In today's community Spotlight, we'll be looking at the night Scout foundation. Everything I'm telling you right now can be found at night Scout foundation.org, night Scout Foundation was formed in 2014 as a direct and natural offshoot of the CGM and the cloud movement. Night Scout foundation exists to encourage and support the creation of open source technology projects that enhance the lives of people with type one diabetes and those who love them. This includes fundraising advocacy and direct software and hardware development. You've perhaps seen their hashtag, we are not waiting. And I think that that motivation is where all this started, a bunch of people who just wanted to have better access to their data so they could do things with it, and they didn't want to wait for a company to give it to them. Today, the night Scout Foundation does volunteering at events. They can help spread the word. They do coding looking for new solutions for type one and the people that care about them. They support people, and they're always looking for people to help and make donations. So go check them out at night. Scout foundation.org, you've probably heard guests on the podcast who have done coding on things like trio or Iaps and loop, and they'll talk about, oh, we got a little bit of money from the night Scout Foundation to help us get the work done. So think about that off in the world somewhere, a bunch of beautiful people who understand coding, they work on these DIY applications, and the night Scout Foundation helps offset their costs a little bit, keeping qualified, motivated people able to do the work. And then out there in the world, you get loop or Iaps or trio, those sorts of things. Current leadership of the foundation consists of Tanya Clark, John costik, Gail the force, Kate Farnsworth, Weston, Norgren and James wedding. These are people who have just put their heart and soul into you being able to have your data available to you. What does that mean? Like some of you might not know what the night Scout app is, but I can open my phone right now and open up my night Scout app, which is pretty awesome, and I can see my daughter's CGM data, right? So it's describing how it all works. Is pretty useless, because I'm not that technical, but I can see things about my daughter's pumping that I couldn't possibly see anywhere else because of night scout. It's a life saver. It's awesome. I don't even know another way to say how great it is. Like there's nothing wrong with the Dexcom. The Dexcom app, but night scout is next level. This is from the website, night Scout foundation.org, the foundation is a non profit that encourages the exploration and creation of open source technology projects that enhance the lives of people with type one diabetes. It is made up of a collection of people that care about using open source technology to improve the lives of those with type one. The board of directors have been heavily involved with night scout from the beginning, as users, developers and support team members. Current board members, as I listed earlier, have been around for a long time. Is what we're trying to say. The foundation is registered as a nonprofit in the state of Texas, in case you're wondering, and they have ongoing discussions with the FDA, right? So you're looking for people who are out there, you know, representing you the night Scout Foundation does that with the FDA, JDRF and other large, legitimate diabetes foundation. Yeah. Night Scout foundation.org, if you'd like to know more, I'm going to do one more organization today that was sent to me by a listener. This is Nami, the National Alliance on Mental Illness. Nami is the National Alliance on Mental Illness. They are the largest grassroots mental health organization. They are dedicated to building better lives for the millions of Americans affected by mental illness, it includes more than 700 Naomi. Is it naming Nami and Ami state organizations and affiliates who work in your community to raise awareness and provide support and education to those in need. If you need help or want to chat, you can text helpline to 62640, you can call them at 800-950-6264, and if you're in crisis, you can call or text 988, their website, namely.org, n, a, m, I dot O, R, G, just go right across the top, there's about section that talks about Warning Signs and Symptoms mental health conditions Common with when that are common with mental illness, different treatments mental health by the numbers. If you just click on your journey, there's a link there for individuals with mental illness, family members and caregivers, kids, teens and young adults, maternal and new parents, veterans and active duty members, identity and cultural dimensions, frontline professionals. They're involved in support and education around the world. You can get involved with them by making a donation, attending a walk, helping them with fundraising. You can create a memorial fundraiser. You can share your story. There's awareness events. You can partner with them. They have an on campus section. If you want to get them over to your college. They do a bunch of advocacy about policy and crisis intervention, public policy reports, everything there that you need to see. So once again, you can call their helpline, 800-950-6264 you can text helpline to 6264 zero, or chat online. And in a crisis, you can call or text 980, 8n, a, m, i.org It was sent to me by a number of different listeners of the podcast that said that they were exceptionally helpful with the struggles that their family was having. So we highlighted two things today, one that is very specifically diabetes, and one that, while not specifically diabetes, I think can be genuinely helpful for a lot of people in need. Are you starting to see patterns, but you can't quite make sense of them? You're like, Oh, if I Bolus here, this happens, but I don't know what to do. Should I put in a little less, a little more? If you're starting to have those thoughts, if you're starting to think this isn't going the way the doctor said it would, I think I see something here, but I can't be sure. Once you're having those thoughts, you're ready for the diabetes Pro Tip series from the Juicebox podcast. It begins at Episode 1000 you can also find it at Juicebox podcast.com up in the menu, and you can find a list in the private Facebook group. Just check right under the featured tab at the top, it'll show you lists of a ton of stuff, including the Pro Tip series, which runs from episode 1000 to 1025
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