#1350 Don't Get Stuck in the Mud
Jess is the father of a nine year old type 1 who wants to get more in touch with his emotions.
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Scott Benner 0:00
Here we are back together again, friends for another episode of The juicebox podcast.
Jessie is the father of a nine year old daughter who has type one diabetes. She was diagnosed just a year ago, and she's already taking a big chunk of the care on herself and has an A, 1c, in the sixes, nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan. When you place your first order for AG, one, with my link, you'll get five free travel packs and a free year supply of vitamin D drink. AG, one.com/juice, box. Don't forget, if you're a US resident who has type one, or is the caregiver of someone with type one, visit T 1d, exchange.org/juice box right now and complete that survey. It will take you 10 minutes to complete the survey, and that effort alone will help to move type one diabetes research forward. It will cost you nothing to help. I know that Facebook has a bad reputation, but please give the private Facebook group for the juicebox podcast, a healthy once over juicebox podcast type one diabetes.
This episode of The juicebox podcast is sponsored by cozy Earth. Use the offer code juicebox at checkout@cozyearth.com and you will save 40% off of your entire order. The episode you're listening to is sponsored by us. Med, usmed.com/juice, box, or call 888-721-1514, you can get your diabetes testing supplies the same way we do from us. Med. This show is sponsored today by the glucagon that my daughter carries, gvoke hypopen. Find out more at gvoke glucagon.com. Forward slash juicebox. Hello, everyone.
Jesse 2:14
My name is Jesse. I am a dad of a nine year old daughter, Brianna, who was diagnosed with type one diabetes in February of 23
Speaker 1 2:30
February of 23 she's nine now, or was nine then she was eight, then, okay, correct. It's been a challenging year. Yeah. Do you have any other kids?
Jesse 2:43
So my son is five, and his so my daughter was in the hospital February 21 and his birthday is February 24 so we were just in fact, she told the doctors, I want to be discharged so I could go home for my brother's birthday.
Scott Benner 3:03
Did you have the birthday in the hospital? Or did she make it home?
Jesse 3:06
We made it home, which was awesome. Very
Scott Benner 3:09
cool. Was this a surprise? Do you have type one in your family?
Jesse 3:14
It was a complete surprise. No diabetes in the family.
Scott Benner 3:18
Okay, how about now that you've been with it for over a year, other autoimmune stuff that you've noticed with yourselves or her? Yes, so
Jesse 3:26
in 2014 and that's the year that she was born, I had issues that were undiagnosed for five years, and in 2019 I was diagnosed with autoimmune disorders. I've had two of them. One of them is children's, and the other is Hashimotos, which is also news to me. It's, it's new to the family, okay, that I'm aware of.
Scott Benner 3:53
So you think your Hashimotos symptoms go back for years. It's
Jesse 3:58
kind of tough, because I think my primary is definitely showgirns, and I check just about every single box for that. And I denied it for like, a year or two, saying there's no way, how could I have this? It doesn't make sense. It's gotta be something else, you know, continuously trying to look and find an answer, but I check almost every single box for that the Hashimotos. To date, I still don't require any treatment or anything. My levels are still relatively normal, but I have the presentation, you know, the scan of my thyroid and everything gives me the presentation of Hashimotos.
Speaker 1 4:39
Can I ask you, do you have any symptoms of it? No, no. And what? What are your PSH levels when they measure them?
Jesse 4:48
I don't know offhand, but they're, they're all within normal range, and they, in fact, I recently saw a second endocrinologist for a second opinion, and. And still have to do the blood work on that, but I have been tested multiple times from TSH levels, and they're relatively normal.
Scott Benner 5:08
Yeah. So there's a pretty wide range in the testing. So if you are over like 2.1 TSH and you have symptoms, they might still tell you you're in range. But if that ever happens and and you have symptoms, tell them you'd like to treat the symptoms. Yeah, because at
Jesse 5:25
that point, like I said, the doctor wasn't willing to treat anything. That's why I'm looking for that second opinion, because I have most of my everyday symptoms are answered by the Children's but there are a couple things that are still unanswered. And it's you know question as is it rheumatoid arthritis? Is it Hashimotos? Is it other things, what do you have? Joint pain, muscle muscle tightness. Is a big one that really isn't answered by shogrens.
Scott Benner 5:58
Stiff back, stiff neck. Yeah, yeah. All the time. Crack your neck. Doesn't matter. Cracks again. Five seconds later,
Jesse 6:05
I have a spot in my shoulder blade that is just a constant knot, and it's, you know, and it's not answered by anything orthopedic. So it's kind of like Arden has all that interesting, yeah, she she diagnosed with Hashimotos as well, or just yeah, she
Scott Benner 6:24
has she takes um two thyroid medications. She takes uh tyrosine for t4 replacement. She takes cytomil for t3 replacement. If you take insulin or sofony ureas, you are at risk for your blood sugar going too low. You need a safety net when it matters most, be ready with jivo hypo pen. My daughter carries gevok hypopen everywhere she goes because it's a ready to use rescue pen for treating very low blood sugar in people with diabetes ages two and above that. I trust low blood sugar emergencies can happen unexpectedly, and they demand quick action. Luckily, jivo kypopen can be administered in two simple steps, even by yourself in certain situations. Show those around you where you store jivo kypo pen and how to use it. They need to know how to use jivo kypopen before an emergency situation happens. Learn more about why gvok hypopin is in Arden's diabetes toolkit at gvoke, glucagon.com/juicebox, gvoke shouldn't be used if you have a tumor in the gland on the top of your kidneys called a pheochromocytoma, or if you have a tumor in your pancreas called an insulinoma, visit gvoke. Glucagon.com/risk, for safety information. But she's like, we could start an ASMR podcast of just art and cracking herself. I mean, every
Jesse 7:54
so in my journey to getting diagnosed, I had a lot of physical therapy, and physical therapy seemed to be the only thing that helped me and but it's only temporary. Every therapist I've been to, every doctor I've been to, is just massage therapist. Their first comment is, Wow, you're really tight. And I'm like, Yeah, that's just my muscles. Hey,
Scott Benner 8:15
Jesse, can you hyperextend your elbows, your arms? Are you super stretchy? Can you pitch a baseball, really well, anything like that. No, no,
Jesse 8:24
I would say my joints are pretty flexible, like, especially my neck. I mean, it's tight and it cracks. But at the same time, the chiropractors that I've seen have also said there's a lot of motion,
Scott Benner 8:35
yeah, so you could maybe have you looked into um airs, Danlos Syndrome. I've heard of that, and I have checked into that at some point. Also, you're much louder right now. So whatever you just did, let's keep doing that. Okay, cool, okay, yeah, so that's an autoimmune issue that would be highlighted mainly with, like, super flexible flexibility, because your ligaments are extra stretchy. You might get, like, over like, hypermobility, I guess would be an easy way to say it, and there is no real treatment for it other than physical therapy. So that might be while, why, while you're doing the physical therapy, it's better, but then it doesn't stay better, gotcha, it's E, H, L, E, R, S, D, A, n, l, o, s, if you want to look into it, awesome. Yeah, that could definitely be it. And the thyroid thing, again, if you have a TSH over 2.1 like, say your thyroid is like three and a half that or four, and your doctor's gonna go, that's in range. You would say, I would prefer to be under two. Can we medicate it under two? It's one little pill. You take it like once a day. I
Jesse 9:42
just pulled up a 2020 result, and it's 2.090
Scott Benner 9:47
okay, yeah, almost 2.1 no one would medicate that. I wouldn't see anybody medicating that, but it's a watch for sure.
Jesse 9:53
Yeah, it's and that's 2020 so, yeah, okay,
Scott Benner 9:56
no, well, how about when you think. Back on your your family, your connected family, your mother, your father, aunts, uncles. Up until
Jesse 10:04
recently, the only thing would be my grandmother had rheumatoid arthritis, and that was the only known diagnosis. You know, autoimmune in the family, in the family. Until recently, my aunt on my mother's side and my grandmother's on my mother's side. My aunt was just recently diagnosed with celiacs.
Scott Benner 10:25
Okay, that's you guys, Irish, Italian, Italian. Okay, interesting. Do you have I'm gonna, I hope you don't mind unpick. I know you're probably, but I think I'm getting to your topic. So give me a second anxiety for you.
Jesse 10:42
No, no, nothing over the top. No,
Scott Benner 10:45
okay, you know, it's funny. I'm just gonna, I'm gonna throw this out there, because I want to get into your topic, right? You know, you sent a little note. Everybody sends a note about, like, what they want to talk about, and because, I hope you take this the right way. You have an androgynous name, so I didn't know if I was going to be talking to a man or a woman today, and now I'm going to say something that people are probably going to find offensive. I found your note I get I was guessing you were going to be a woman because you spoke so much about trauma in your note.
Jesse 11:22
It's interesting. I mean, so when I started my pitch, my pitch was, Hey, Scott, I'm just a dad. I'm just a 45 year old dad, and it's just like, I'm just a regular dad kind of thing. But I will tell you that this diagnosis hit me hard. My wife was the champion the let's put all that crap aside and full steam ahead, let's figure this out and get going. And I was holy. Now, what
Scott Benner 11:53
you know, like stuck was that your personality prior to it,
Jesse 11:57
no, no, no. Like, I'm, I'm, I'm,
Speaker 2 12:01
I think I'm often the problem solver,
Jesse 12:06
the let's deal with reality. We need to get to the next step. My wife is also like that. Both type a people that just, let's go, let's, you know, get things done, right? You know, there's, there's, you know, going back to college, you know, a breakup hit me hard. Generally, I'm not the emotional guy. I'm the, let's do, you know, I'm very task oriented. And for some reason this not, for some reason, this just hit me. Yeah,
Scott Benner 12:37
you think it could be, because it is your daughter 100%
Jesse 12:40
you know it's like when it's your own kids, and it's the same thing, like anything medical you could give me gunshot wounds, stabbings, somebody bleeding all over the place, and I'm calm, cool, collected, no problem. My daughter gets a paper cut, and my wife is often like, get out of the way. Let me do this. And it's like, it's, it's my daughter.
Scott Benner 13:04
I don't need this guy crying on the band aids. We gotta go. I'm telling
Jesse 13:08
you, like, she literally pushes me out of the way and says, Get out of here. You're no help. So, and it's, it's strange for me because like that, that's like, my, um, that's my wheelhouse. That's, you know, I have no problem with that, but it's my daughter and I just, I crumble. Do you freeze or do you fall apart? Um, just fall apart. I don't. I don't freeze like I definitely act, but I'm a mess. You know, it's just not the typical my wife's right. Get out of the way. You're not
Scott Benner 13:41
crazy. Tell me about about Brianna's diagnosis. Then how did you guys figure it out? No, it's,
Jesse 13:47
it's kind of like mirrors, you know, everybody else's story leading up to it. She was super tired. We had just gone to Disney in December, in December, all the way back then, she wasn't herself, like, I remember saying it to my wife like, She's awfully quiet, she's not quite herself. And then come February, you know, up at two, it she the the bed wedding is, was the final clue that, you know, we're like, something's not right. We, you know, we did the research, we looked and we're like, diabetes. Maybe she has diabetes. And, you know, like a typical parent would do, I went in to denial, and I was like, nah, nah. That seems crazy. But again, she checked
Speaker 2 14:36
the boxes. So we scheduled an appointment
Jesse 14:41
with the pediatrician just prior to the bed wedding, and then she wet the bed and like the following, like, I don't know it was like four days away or whatever, that we had the appointment previously scheduled. So we're like, Okay, let's get her to the doctors and see what happens. I'm. Never forget it, because I don't know what happened, but I promised Brianna. I was like, Yeah, well, I'll get you a smoothie. So let's go get a smoothie. We'll go to the doctor or whatever. We just happened to be running late, so I was like, All right, the smoothie is going to have to wait until after the appointment because we're running really late.
Go in,
I knew what was going to happen. I knew they were going to check her sugar. And I don't know if I expected it to be high or not, because I really didn't really believe it. I was like, There's no way. Yeah, but sure enough, they checked it. She was I forget what the number was, but by the time we got to the hospitals, it's close to think it was 600 you
Scott Benner 15:41
know, you and I live so close to each other. I think you might have gone to my kids pediatrician as possible. Yeah.
Jesse 15:47
I mean, it's like, it's crazy, because it's funny, because the office that we normally go to, we went to a different office because there was the available appointment, right? They were like, you have to. I think they did the finger stick there, but we are the urine test, but we had to go to the other office to do a finger stick or something. I forget. It's kind of all a blur. They made us go to the other office in another town before we went to the hospital? Were
Scott Benner 16:21
you? Well, maybe it wasn't my pediatrician. It sounds like a sounds like we got to get you to a better place. But so wait. So what are the um, with the four of you together,
Jesse 16:29
where did you just go? It was just me and her.
Scott Benner 16:32
Why did they send Captain crumble? How come your wife didn't go? Did you? Oh, you didn't know this about yourself yet. No,
Jesse 16:38
that's true too. Like, I mean, I wasn't crushed at that point. So, like, you know, but still dealing with her with any true emergencies. It's
Scott Benner 16:50
not, not the best. But how often does that really happen?
Jesse 16:53
Yeah, it doesn't, yeah. So it wasn't like anything, you know, it's super known. But then after that, it was like, I just went into, like, a tailspin pretty quickly that day, no, no, I think the during the hospital stay, like it was just, you know, once we got the confirmation, once, you know, they did the finger stick and sending us to the hospital like it. I mean, I, I knew at that point. And once we got to the ER and they did the intake and whatever, the number was six, 700 I don't quite remember, but it was definitely high at that point. I wouldn't say I was crumbling, but it was like, Oh my God, you know, like it was just, what
Scott Benner 17:38
were the thoughts that were getting you. Do you remember specific things that were were alarming to you? I mean, I listen, I understand the whole thing's alarming, but were there things that stood out, I think,
Jesse 17:50
for me, and I think why it hits me, hit me hard is and I think a lot of parents will say this, but like Brianna, is a very bright eight year old. She's in gifted and talented. She's super smart. She has so much going for her, super mature, you know, bright girl, really nice, great friends. You know, just everything about it is like, this is perfect daughter kind of thing. Just knowing the diagnosis it, it was just,
Scott Benner 18:25
did you think her life was over? Yeah,
Jesse 18:28
yeah, that that's, you know. And again, it goes to that my wife pulled me back in. Like, hello, this isn't cancer. Like, you know, this isn't death sentence, you know, so to speak. So, yeah, like, you know, in my mind, this totally changed her life. You know that I didn't view it as a speed bump. I viewed it as crushing, like a crash,
Scott Benner 18:53
like, like, we Oh, my God. She only made it seven, eight years, and now and now, all the promise of her life is gone. How
Jesse 19:02
is she going to do those things that we envisioned? You know, you know her bright future and right just taken away or gone. A little, you know reality, a little knowledge and understanding what diabetes is, and knowing that it is not a stage four cancer or something like that. I mean, once reality sets in, it's not that doom and gloom, but I I still had a really hard time with why her, you know, like that. Why did they why God, pick her, you know, why does she have to go through this, that type of stuff.
Scott Benner 19:41
Was your life going really well up until then? I mean, it was good, good. Okay, not like you like, but things were going the way you expected they I guess that's more. Mike, yeah, that so that's how I felt, right, like things weren't easy, but they were going I had a goal. We had goals together. Things were moving towards those goals as expected, exactly, yeah. Then the diabetes is, like, it felt like the thing that, really, I was gonna, if it, like, if me up, because I was like, it's maybe the first time as an adult that I thought, Oh, I have no control over any of this. Yeah, yeah.
Jesse 20:18
It's, it's, you know, all that taken from you. You know, you have zero control. And as far as I want to say, like the outlook, I mean prognosis or whatever, like at that point, you don't, you're not really in tune to all the nuances of diabetes. But at the same time, you know, it's not stage four cancer, but it's still heavy, yeah. And I think once throughout the hospital stay, you know, and seeing, okay, yep, she's going to be okay. This isn't, you know, it's manageable. There's tons of stuff out there, seeing, you know, the various people who came in during the hospital, it was outstanding, even like I I hear, you know, horror stories from people admitted and whatnot. And we had an unbelievable hospital stay. We had, we got connected with her current doctor. You know, when she was like, you know, I practice outpatient. She could be my patient if you're interested. And I'm like, Absolutely, you seem great, you know. And she she is her doctor. Is amazing. That stay in the hospital definitely helped. But it's still overwhelming, you know, and that fresh feeling of, now, what? And
Scott Benner 21:40
it doesn't take long for you to realize that as good as the hospital was and how and as comfortable as they might have made you feel that they didn't really tell you, like, a small percentage of the things you're actually going to need to know no fault of their own. Like, how would they
Jesse 21:52
but you were really I feel like we were really lucky. We had an unbelievable educator. You've
Scott Benner 21:58
probably heard me talk about us Med, and how simple it is to reorder with us med using their email system. But did you know that if you don't see the email and you're set up for this, you have to set it up. They don't just randomly call you, but I'm set up to be called if I don't respond to the email, because I don't trust myself 100% so one time I didn't respond to the email, and the phone rings the house. It's like, ring. You know how it works. And I picked it up. I was like, hello, and it was just the recording was like, us, med doesn't actually sound like that, but you know what I'm saying. It said, Hey, you're I don't remember exactly what it says, but it's basically like, Hey, your order's ready. You want us to send it? Push this button if you want us to send it, or if you'd like to wait, I think it lets you put it off, like, a couple of weeks or push this button for that, that's pretty much it. I push the button to send it, and a few days later, box right at my door. That's it us. Med.com/juice, box, or call, 888-721-1514, get your free benefits checked now and get started with us. Med, Dexcom, OmniPod, tandem, freestyle, they've got all your favorites, even that new islet pump. Check them out now at usmed.com/juice box, or by calling 888-721-1514, there are links in the show notes of your podcast player and links at juicebox podcast.com to us Med, and to all the sponsors. The podcast is sponsored today by the place where I get my oh gosh, my sheets, my towels, some of my clothing, a lot of the things that I stay warm or comfortable with. Cozy earth.com I'm wearing a pair of cozy Earth joggers right now. I've recently gotten another pair in a different color. I sleep on cozy Earth sheets. They are so comfortable and soft and temperate, temperate meaning I'm never hot or cold, which is really saying something, because my wife loves to turn that giant fan on, but they keep me nice and warm without making me like, sweaty or moist. You know what I mean? You don't want to be moist while you're sleeping. And then, of course, the waffle towels I use every day to dry off my bits and parts after I've showered. Cozyearth.com use the offer code juice box at checkout to save 40% off of your entire order. I'm not saying 40% off of one item. I'm saying 40% off of everything you put in the cart. Cozyearth.com use the offer code juice box at checkout.
Jesse 24:24
They got her CGM on her, like, day one or day two. Like, I mean, super quick, just the connection of here's what's going to happen, as far as you know. Here's your MDI. Here's how it works. Here's all the calculations. We're not going to discharge you until you know what you're doing. A nutritionist came in, like we were peppered with you
Scott Benner 24:45
felt ready? Yeah, 100%
Jesse 24:49
like when we we left, we I forget how long we're there, three days, four days. I mean, it was on a longer end compared to a lot of people. Let's say day three. Three, like, I don't wanna say we were experts, but we were pretty comfortable.
Scott Benner 25:03
Did that end up panning out like in real, real world play? Did you actually know what you were doing?
Jesse 25:09
I Yeah, okay. I think we, like I and I attribute it to the A our the endocrinologist, amazing, and then the diabetes educator that we had. She also had type one, okay, it was absolutely huge. I mean, she hit every point that you would want to know, and she really, truly educated us before we were discharged.
Scott Benner 25:34
What's your background? That you felt like you picked it up so quickly. So I,
Jesse 25:39
I was an EMT. I was an EMT for about 10 years or so, high school through college, and now I'm a police officer. Now the medical aspect of things is always interest. I always had an interest in the medical field, okay, I think it was a combination of maybe a little bit of my background. I did not as an EMT. I definitely did not know diabetes until the diabetes, until Brianna was diagnosed. And the educator, as far as, like, being an EMT police officer, you get very, very, very little training. You
Scott Benner 26:15
know, it's funny, I don't want to shift this on to me, but I just felt for the first time that I might get a PBA card out of this podcast, and I got really excited. You could I have one you don't want to take responsibility for how I drive. Trust me,
Jesse 26:34
all of my I get, not different than many people in New Jersey, New Jersey. So I don't know, I don't
Scott Benner 26:38
even know how to describe what I use driving for, but it's some sort of a release, that's for sure. Isn't that interesting because at work, you're constantly, that's what you were alluding to earlier, like, in like, blood bang situations, you're okay,
Jesse 26:53
yeah, it's like, and, and my wife could see it as soon as you know, it's one of my kids, she's just like, get out. And typically she doesn't deal with the blood and all that stuff. But when it comes to her kids, she's on it. So we kind of reverse roles with that. Yeah, that's
Scott Benner 27:10
the mom thing, for sure. Yeah, that that whatever gonna say blockade they throw up in their brain in situations like that, is really impressive. You know, it's, it's like a superpower, really is crazy. I'm like, OmniPod. Like, normally she's so goofy, and now she's like, seems to know what's happening.
Jesse 27:27
So we have this, we have the same life. It's superhero powers. No
Scott Benner 27:32
kidding. Really cool. Okay, so you've taken the the diagnosis as a trauma. Did you go to therapy? Yeah. So not initially,
Jesse 27:42
initially, I think we were still very much in the management stage, just trying to figure it out and balance things out and more task oriented. So even though I was crushed, it took me a little bit of time, I don't know, let's say, actually, I guess it wasn't that long, maybe a month and a half, month to month and a half, before I found somebody. And the therapist that I found is a type one diabetic. I don't know that. I knew that up front, but he, he was a former paramedic, and I knew him like I've I've been to training, you know, he's a little bit older than me. I've been to training with him. I know he trained me to some degree, through various EMT classes, and I knew who he was, and I that's how I found him. And I think it just happened that he happened to be a type one diabetic, so I kind of got a double benefit, because he's familiar with the job and how I kind of react to things and deal with stuff. But then he also had the knowledge of diabetes, which was huge, because he can put things in perspective and just simply say, you know, her blood sugar's 200 she's not gonna die. You know, Jesse, how
Scott Benner 29:02
old are you? 45 oh, you're not that much younger than me. I'm sitting here as you're talking, and I thought this podcast keeps like surprising me as it grows like I didn't if you would have asked me, like, where on my bingo card do I have, like, in touch, open, honest male cop. On my possibility of recording with somebody, I would have put that pretty low on my list.
Jesse 29:28
You had me as young female mom.
Scott Benner 29:33
Yeah, no kidding, good for you. So,
Jesse 29:35
I mean, I do have an interesting background, like I started EMT wise, and I went to school. I was the first one in my family to go away to school, go through college, got my master's degree, and I got my master's degree in community counseling. I have the degree in counseling, and I at that point, I was like, I satisfied my family. I got. My degree, but this isn't what I want to do. And I did a lot of internships and stuff in the inpatient psychiatric inpatient because I liked the variety of it, and I quickly put myself through the academy doing the police thing. And that's where I want to be. My background is that typical of a police officer?
Scott Benner 30:20
Yeah. I mean, I know a lot of cops, if you listen, you might know that right, like I was, I was just at a retirement, my buddy just retired as a sergeant the other day, and I was, I was faced with all these guys I knew when I was younger, who had all gotten older. Such a crazy thing. Felt like I walked through a time where I was, you know, 1819, 20 and they were 2324 2526 like back then. And then I get there, and they're all like, you know, in their late 50s and early 60s, I was like, What? What happened to you guys? But they were all still very kind of classically the way you would expect them to be. And I think for people from the outside, you might have one picture I find the people I know who are police officers, to be really lovely people, but they're also more no bullshit people. They usually lean a little more conservative than liberal, maybe, like they fit into a bit of a into a mold, right? But, but nobody you'd want more than them in any kind of a personal situation, like anything like my lawnmower broke, to my kid just fell out of a tree, to I killed somebody. What do we do? These are the people I would call you know what I mean, not one of them is anything like you. Well, super interesting. Do you feel proud of that? No, I
Jesse 31:35
do like I I've been lucky to like. I'm lucky to have the background. That I do. Retirement wise, I'm definitely thinking along the ways of counseling for kids with diabetes. Like, that's kind of like, yeah. I mean, both my wife's pushed me to do that because they're not out there. They really don't exist. It's pretty tough. Yeah, there's
Scott Benner 32:01
not a ton of them. I'm just, I'm just surprised you didn't say I'm going to work security to car dealership, because that's pretty much so
Jesse 32:07
I have the mindset that as soon as I retire, I'm doing nothing police related, so and, and I think with my background, like, I'm lucky I have that option, which is, which is kind of nice,
Speaker 1 32:19
but you ever had to pull your weapon out? Oh yeah, yeah. The thing had things changed over the last 10 years around here. Oh, my goodness.
Jesse 32:30
The world we live in is crazy. Easiest way to put it, it's absolutely nuts. The thing that grounds me is the perspective and, like, just, you gotta put things in perspective. And like, when going back to the diagnosis, I couldn't do it like, like, you just spiral, because it's, it's my kid, you gotta look at the bigger picture. You gotta look at, you know, what is the reality of stuff, and put things in perspective.
Scott Benner 33:00
So you're doing that? Is that helping you? Yeah, 100%
Jesse 33:02
like I think, as time has gone on, you become more educated, you learn more, you're able to manage things, and you obviously become more confident and able to deal with stuff. It certainly helps. Yeah, I think for for me, where I'm at now, when I reached out to you to say, hey, I'm interested. You know, this diagnosis really crushed me, but at the same time, things were getting better, and you are the physical and the daily management of things is easier as time goes on and you know, you're less I guess, bothered by the late night lows or whatever it may be, because you're just able to deal with it. But Brianna has had a hard time mentally since I put the request in to be on the podcast. So the whole mental health aspect of it is shifting from you to her. Like, when I say, like I was crushed, like I felt it, but I don't she. She may have picked up on it, but I like, you know, like in your mind, you may think like a full blown depression, I wasn't there. It was just the maybe more of like an anxiety of now what and having to
Scott Benner 34:33
move on and deal with it. But
Jesse 34:34
I think, like I was able to do that relatively quickly. But for her, she internalizes things very much so, like where
she feels like it not that it's her fault, but it's that she's no good. And it's not,
I know it's not all diabetes, the daily stress. Answers of the disease has made things harder for much harder for her.
Speaker 1 35:06
Do you have examples of of some things that have gotten gotten the better of her? So
Jesse 35:11
I guess the latest thing for her is, you know, obviously, I think most kids that are diagnosed, obviously have to deal with their peers and a lot of the questions and things of that nature. And at first, Brianna was like, no shame. You know, here's my pod, here's my Dexcom. This is what it does, zero shame she was out there. She was not afraid to show them. And that kind of slowly morphed into, well, I don't want to put it there today. I'd rather, you know, put it on my arm. Wear long sleeves to so and so keeps asking me about it, and I don't want to talk to him about it to I think the biggest challenge we had recently was her nurse, her regular nurse was out with an injury, so we had a couple of substitutes, so the consistency was difficult, because she was, you know, she would text and say, I just got called down to the nurse's office for 130 you know, down or they called me down to the nurse's office at 90 and they wouldn't let me go to to class for 30 minutes. I treated with 15 carbs, but then they gave me an another 15 carbs. So, like a lot of different things, and like, over like a month's period of time, I was trying to figure out how much of it was her just reacting to things, or just having a hard time to how much of it was the nurses just not following the plan. It took a little bit of time to try to figure it out. And I'm like, You know what? My daughter is really smart. She pretty much has this why am I relying on the nurses at this point? Because she's having a hard time with the nurses, either over treating her or calling her down prior to a low to different different things, like one nurse just like to let her ride high, another nurse would not be okay with the Dexcom continuously going down, even though she already treated and should be going back up so she would overdose.
Scott Benner 37:33
Yeah, so once the new car smell like, wears off, and she's not like, you know, like, I've got diabetes, and it's cool, and let me show you my stuff. Like, once that happened, that went away, and, by the way, was that heard, were you guys pumping her up like that? Do you think, because I see that, I see that sometimes, like the parents are, they get, like, cheerleaders. And I'm like, oh, you know, you're trying to make something exciting. That's not really exciting, you know, like, No, I mean, insulin pumps are terrific and everything, but they're not like, on the level of, have you seen my new iPhone? Yeah,
Jesse 38:04
in the beginning, I think we were pretty we were very strong with me, encouraging her to help others understand, like, educate kind of thing, as far as showing stuff off. And I don't think so, like, I don't think we pushed that with her, but we were definitely like I was saying, we were, you know, with two type a parents, and we were very much with the teach people about this. If they want to know, teach them, tell them, educate. I think she did, but I think that we're off to the point where she became annoyed with the, yeah, too
Scott Benner 38:37
much, right? And then the kid that wants to know too much. It stops being fun, and it starts being like, leave me alone. And then the nurses start making mistakes, and then everything is a hassle, like it, it's holding her back instead of helping her.
Jesse 38:50
Oh, like, you know, she's diagnosed at eight, so I kind of envisioned, you know, burnout happening like 1314, 15, someplace in there. But here we are at age nine, and it's like, kind of like a burnout, and it's, it's just been at it for a year. Yeah,
Scott Benner 39:10
I saw somebody online today. They were kind of lamenting all the things that have been going backwards for their kids since the diagnosis. And it feels terrible when you're reading it. But like, there's this part of me that knows, like, this is all normal, which it sucks, because, you know, your kid wishing that they were somebody else because they don't want to have diabetes or something like that, is not, it's not an easy thing to hear, obviously. But then you start, you know, I start hearing the I can't take this anymore. Like, I can't do this anymore, from the from the parents, like, I don't know how much longer I'm supposed to live, without sleep, without this, without that. And I'm like, Yeah, you gonna do it? Like, so, I mean, I'm not saying your attitude, you know, makes it better, but you got to get past the part where you're like, I can't, because it does.
Jesse 39:57
I mean, yeah, I think the attitude is. Is, like I said, kind of going back to grounding and putting things in perspective. Like the attitude is key. Yeah, I find, like me and my wife, we kind of like trade off, you know, she has bad days, and it's like, this sucks. And it's like, all right, I got it. I'll deal with it tonight. Where, you know, I have bad days, or just came home or something, and she has it. So, yeah, the attitude is key. But I think, like, personality goes into it for her a lot. She is, like, there's a control factor. And when she doesn't have control it, it's very hard for her. You know, in talking to her teacher, the social worker and the nurse, the nurse wasn't on the same page, but at least the teacher and the social worker is like, she needs to be independent. She can do this on her own. Let her do this on her own, and gave her carte blanche. Everything is yours. And nine years old, she's she's rocking it.
Scott Benner 41:06
How are outcomes like, what's her? A 1c like, in
Jesse 41:10
February 23 she was diagnosed. She was a 12.8 in May of 23 she went down to a 6.8
Scott Benner 41:19
and then we were, like, couple visits
Jesse 41:21
in between. We're 646364, and then our latest visit, which was last week, couple days ago, actually, was a 6.5 so she went up by point
Speaker 1 41:33
one. Oh, she's doing terrific. She's doing that by herself, mostly herself, 100% Oh, geez,
Jesse 41:39
she has brought up, like, you know, the nurses have said things to her, like, you shouldn't have just juice. You should stabilize, you should add protein and protein to help stabilize your sugars and whatnot. And it's like, I see your point. You know, like to the Brianna's like, no, that's not how you do it. I gotta have fast acting carbs, and then they're giving me additional carbs and proteins on top of the juice, and it's causing me to go high, and my pumps doing corrections, and then I'm hitting the low an hour, two hours later. Because what
Scott Benner 42:15
kind of pump is she using? The
Jesse 42:17
OmniPod five. The OmniPod, we have it set almost as aggressive as you can. We're constantly in a state of flux where we're adjusting stuff. But I would say her Target's 110 her ratios are pretty aggressive. Correction factors aggressive, like we're pretty aggressive with things. But at the same time, you know, the endocrinologist says don't correct Under this circumstance, and she has followed her guidance, which is awesome.
Scott Benner 42:49
Yeah, wow. So do you think that having it, the management on her is part of her burden right now, or do you think she's okay with that part of it, and it's more about the outside forces?
Jesse 42:59
So she's only been managing for completely by herself about a month, and it's been like night and day, much better for her. The flip side is she's still nine, so she's a kid, and she'll forget to dose, she'll not do a correction. You know, some of those things that you would expect of a nine year old. So I
Scott Benner 43:26
bet she also doesn't like being told what to do by the nurses, especially when they're not right, too.
Jesse 43:30
Yeah, like that. That was probably the biggest factor for her mental health. I mean, she and I didn't really see it as a father for a while, as to how defeating or annoying it was to her. It it truly bothered her. Yeah, now that she's doing it and she has more confidence, she feels better about herself. Every aspect about it thus far has been when we last week, when we met with the endocrinologist, the social worker, the first thing the social worker said to her was, you know that you don't have to do this all by yourself, right? And she's like, No, I know. And she's like, you know, there are people to help you, right? And she's like, Yeah, you know, like, sometimes I forget, and Mom and Dad help me. Sometimes mom and dad ask me, you know what my number is. You know, different things like that that, you know, it's
Scott Benner 44:31
most important that she just realizes that there's someone there, not maybe so much that she has to actually take them, take them up on it all the time. I think maybe just knowing it's there is valuable
Jesse 44:41
100% because she would take it on herself if she could 100% you know what? I mean? Yeah,
Scott Benner 44:48
it's something super well. You know, I just put out an episode today. It's the first of a four part series with Erica about resilience. We really dug into what like. Being resilient means, and how people end up in that situation. And it's not as clear cut as I think we make it out to be. It's pretty it's really very interesting. A lot about like, what's happened to you in the past, how you face things, you have a much better chance. There's this list. It's called, like, the ACES list. I'm gonna do a lot of this off top of my head. But for people who have lived through certain issues, they have different challenges, physical, sexual, verbal abuse, physical emotional neglect, living in a household with mental illness, growing up a parent who's addicted to drugs or alcohol, if someone in your home has been imprisoned, witnessing abuse, losing a parent to divorce, separation or death, like these things all impact how you manage like stresses and how resilient you actually are as an adult. It's super crazy and interesting, and it's very often not up to you, yeah, so we spent a lot of time picking through it. It's interesting because you describe you and your wife is very type A, yes, you know, like, and so your daughter, I guess, likely, is too like, even that's what I hear, which doesn't want the nurses to tell her the wrong thing. Yep, you know, a lot of people, they'll just listen to authority and do what they're told, and if it's wrong, they'll go, well, they were wrong, not me, and then it's all gone. But she doesn't want someone else in control of it. She doesn't even really want you guys in control of it. It doesn't
Jesse 46:30
sound like, no, yeah, and it's and she, you know, as a kid, it's tough, because she she has to balance the listening to authority, and she, 100% wants to do that, and does that because she has those values and everything else. But at the same time, she also wants to control to or at least, like you said, if they're doing something wrong, she just, more often than not, will take it and listen to the authority, and that would make her feel worse, because she feels like
Scott Benner 47:05
she knew the right thing to do, right? And she's not in control. Well, this is, this is very new, developing, to say the least, for you guys,
Jesse 47:13
resilience is a, I think there's like, certain key words, like, you know, putting things in perspective, resilience, patience would I don't like I think resilience is probably the best word, but to be that way, like you said, I don't I think your life experiences helped you to do it like I find it
Scott Benner 47:33
after having the conversation with Erica, it's largely not up to you how resilient you are.
Jesse 47:38
Like my mentality is adapt and overcome. You just gotta do it, unless it comes to my kids, right?
Scott Benner 47:46
But do you, can you look back on your childhood and figure out where that comes from?
Jesse 47:50
Yeah, like, it's definitely your upbringing. I think, like, my father was tough. He was definitely disciplinarian kind of thing, authoritarian, but he, he also very much so challenged us. Everything was, you know, trying to figure this out and do well. And he pushed us to do well, motivated. So I think that it kind of put you on that track. Yeah, you're kind of put in a position where you have to do it, right? I think, you know, like, I hear it a lot at work and stuff like, Gen Z, Gen X, you know, different. The word is, like, it's just a different breed. I don't completely subscribe to it. It's, it's true, like, it generational differences is, you know, there's clearly differences, but I think part of it is the world and how they're growing up today is different than when we grew up, you know, like, just think of like the playgrounds when we were kids in 1980s the playgrounds at school were considered death traps in the 1980s and I wouldn't go out and play without getting like a splinter or banging your head on a metal bar or something like that. Whereas today, everything is padded and low to the ground and, you know, just super, super safe that it's, you know, it's almost like, over compensation. It doesn't allow kids to to learn.
Scott Benner 49:28
Yeah, I wonder how, how that's going to change, because your daughter's a completely new generation now. I mean, at eight years old, you know, and your son even at five, like, right? Like, where does this like? Because they, they're going to fast forward through so much stuff, like things that we would have spent years adapting to, they learn about, get thrown into, figure out and move past, sometimes in weeks, it's kind of fascinating. Like, I think it's gonna overall make people more capable, you know, but like. In those in between generations, for the people who weren't accustomed to it, it was a big shift, yeah, like, a, like, a really, really big shift. I feel lucky that I paid attention to technology early on in my life and I kept up with it, because I think that keeps me, like, nimble. And like, you know, I see something new, and I'm like, Ah, that won't work. But then you see another thing. You go, that's a good tool. I should learn how to use that. Then you use it, you learn. Then you have to be careful. You don't start learning so many things that actually, you can't actually apply them. And then when I kind of explode that out into real life, like, I wonder how many things kids are taking in that are valuable, and how many things they're taking in because it's in their face, and you feel like, oh, I need to learn this new thing. But it really, it won't hold any long term value for you, right? It's super interesting. Like, I mean, like, I can't wait to do this podcast for 10 more years and talk to like, your daughter 10 years from now, like, and see where she's at, because she's probably going to be fine. And you'll realize that a lot of this was just necessary to have happen, and that the real key to the whole thing is to not get stuck in one place, like not hit quicksand and think, Oh, God, this problem right here is gonna define us, and then you worry about it so much you can't get past it. You know what? I
Jesse 51:19
mean, yep, and I think for her and people growing up, you know, today, it's the management tools are changed, evolving and changing so much that it's like all these tools or resources are available, at least for the physical part of it. I think the mental health side, it's tough, like, there's not a ton out there for the mental health aspect, yeah, but I take
Scott Benner 51:45
your point with kids. Think about this though 30 years ago, an eight year old type one just had diabetes for a year, could not have said I have a mid six, A, 1c that I manage on my own. And my biggest problem is that my nurse doesn't understand fat and protein and how it pushes up my blood sugar later, and how to mean those people were back there going, Oh, the doctor told me I'm gonna die in my 30s. So I
Jesse 52:12
mean, like the management's evolving so quickly that
Speaker 2 52:16
her and even new generation, it's like they're gonna have different experiences,
Jesse 52:21
and it
Scott Benner 52:22
should allow them to focus more on the mental health side of diabetes, which might be one of the might end up being one of the more, like, unsung heroes of the technology, like, you know, like we think about it, and all the other aspects of life, right? Like your car drives itself. You don't have to do this. You're you know, this does that like, you know, takes this load from you. What do you do with that time, once the the load's been taken away? And I would say that type ones, historically, are so busy keeping themselves alive in the moment, they don't have time to think about big picture stuff. And maybe now they will like, maybe now you can throw in an OmniPod, five, an eyelet pump, hand them something or other, like, you know what I mean, and let the thing run your A, 1c, in the sixes. You figure out the nuts and bolts of it. You move past that part, and now you have, like, time and bandwidth to think about the other stuff. Like, you know, and maybe you you'll end up with a more complete person at the end because of that, set it and forget it. You know, hopefully, hopefully they, some people figure it out. Like, I mean, it's not always. I don't see how it can be perfect ever, but, you know, right now, but the algorithms are insane. Like, I'm updating Arden tonight to another algorithm. So, you know, she's been using Iaps. Now she's going to move on to a different one. I love seeing where all this stuff goes and and, and what it lends you back, like, that's the part, man, that like what it gives you back in time and again, bandwidth. I don't think we're even up to appreciating that all yet. You know what I mean, even just like people use the GLP medication, they don't use as much insulin. You think, oh, there's great reasons, like, you know, to not use as much insulin. But how about, like, you know, removing acne or PCOS problems for girls, or, what about just use less insulin? You know, fewer insulin units, fewer lows, less three pound highs from medications like that kind of layer from eating and trying to stop below, like, all of that stuff just removes a layer of complexity, like, over and over and over again. Yeah, anyway, I want to keep doing this. I think the stories might be even crazier. 10 years from now,
Jesse 54:37
you had the one person on who I forget that you brought back. And I don't know if she was an exchange student, and I forget her name, but it was interesting to hear her story, like four years later, or whatever. I think you had her on, initially, a diagnosis, and then like, four years later, where she was, was
Scott Benner 54:54
it from Russia? With sarcasm, yes, yes. Yeah.
Jesse 54:58
That was really cool. See, because, like, you got, you know, the real life version of where they're at. And you know, some things are good, some things are bad. You just, you just deal with it, and, you know, you move on. But no, I
Scott Benner 55:11
agree. Even cool, she had, like, a tragic, personal yep thing happened in her family. And even though you could tell she's dazed from it still. Yep, she's moving. She's still moving in the right direction. And and, you know,
Jesse 55:27
hearing those stories like it's it's huge, because, like, you know, other people can relate. The beginning of her story
Scott Benner 55:35
is crazy. She lived in Russia when she was diagnosed. She's in, I think she's in America at college now, she didn't have access to a lot of the tools and or anything. She didn't really know what she was doing so well. You have to go back. It's called From Russia with sarcasm. She's like, 14 when I'm interviewing her, and she found by herself the podcast figured out all the tools she needed to take good care of herself at 14, went to her parents and said, I need you to find out how to get me an OmniPod and a CGM. And, like, she, she basically tasked her parents with, like, Fine, get these things for me in a country where they were not particularly available. They sourced the things for she puts her a 1c crazy good, takes care of herself completely. And then, you know, like, just has the greatest outlook on things,
Jesse 56:24
that is Brianna. Brianna is very much, here's what I need. This is, you know, and what's interesting to me is, you know, in the beginning, she was, I wouldn't say, showing stuff off, but she she had no shame. Then she moved into, well, you know, I'd rather not talk about it to now. I mean, she listens to your podcast regularly, like, and I'm like, I'm like, All right, Bree, let's, let's turn this off. You know, like, I'm sick of hearing Scott's voice. Let's turn this off.
Scott Benner 56:58
Listen. You can turn the volume down Jesse and let it finish. So I get to download, you know what I mean,
Jesse 57:03
or headphones, something. But, you know, like
Scott Benner 57:06
to the point that, like, listen,
Jesse 57:11
as a parent, like, I think one of the struggles, you know, if somebody's so young, is balancing. It's not all diabetes, you know, let's, let's tune out. Let's go something else, you know, let's not make it all diabetes. But she's also in a place where she she wants to learn which is, which is awesome, yeah, but
Scott Benner 57:32
it's just really fantastic to think that that she might be able to find herself and her answers in other people's stories. And again, there's a thing technology brings to you, right? Because if you go back 1015, years, I don't think in a lifetime, you could meet 1000 people with diabetes and hear their story. You know, 10 years ago, how would you do that now? You just like, you know, subscribe to a podcast. People will ask me times like, Why does it take so long to get on the show? Well, when you stop and look at Jesse's note, I'm going to read your note. Keep in mind it's not even the one you probably started out writing, probably not newly diagnosed child. Resources, support. Learning diabetes is tough, but the emotional aspects is being missed. Everyone is in a state of trauma, and they just react for good reasons, but the mental health element is absent, then navigating these emotions and learning diabetes as time progresses, does the trauma ever end for the child and for the parents? Also, I have to navigate schools and camps. It keeps kids safe, and that was probably written six months ago. You're not even that person anymore. Yeah,
Jesse 58:38
I remember it. I definitely remember that stage, but it's not the part you're in now. We're not trauma, we're not screaming at everything. Yeah, it's definitely different.
Scott Benner 58:49
Yeah, that's the lesson, Jesse. And one of the reasons why it takes six months to come on the show, because you'll actually have something to talk about when you get here, and then this will sit and marinate for months before it goes up, and when you hear it back, I guarantee you'll listen back and think I'm not even there anymore. Like and to me, that's the takeaway for people, is that, you know, train keeps on rolling. I think the biggest mistake people make, and if it's a mental health issue, sometimes it's not a mistake, it's just what happens to you, but it's that getting stuck in the mud and then not getting away realizing that this thing, as important as it seems at the moment, with just a tiny bit of hindsight, will seem irrelevant and just be a small portion of like, my perspective, and not the entirety of my life,
Jesse 59:33
going back to that, that word perspective, I think for me, that's it's huge, because there are many, many moments that are muddy and challenging, and whether it's nighttime lows or just a stubborn high, whatever the case may be like, there's there's moments that are challenging, but the overall perspective and the overall. Overall, like, you know, just moving in the right direction. It's, you know, we're only just over a year into this, and that journey over the past year has been, it's been a roller coaster, you know, looking back at it, but it's, you know, we're still riding it. And it's, it's one of those things that I think when I wrote that note, one of our challenges was the support, you know, just getting her connected with, like a mentor or other kids that you know, she can share, and she has a couple of friends you know who've been diagnosed that she's met along the way, one at camp, a couple at the walk and different events, but nothing close and personal. And I just think she's not ready for it, or maybe it's just not the right connection. But she does occasionally text, you know, all three or four of them with, you know, notes like, Hey, how are things? Check out, you know, screenshots of her sugar pixel or whatever, and different things that, like
Scott Benner 1:01:04
they do talk, but,
Jesse 1:01:06
you know, not super often, but I think she's missing. She was missing, and now is getting connected with like she tends to connect with older girls that share what they have, and she views them as kind of like an authority figure, or like somebody with knowledge that she wants to learn, or, Hey, that's a cool teenager who's who knows, and it's not mom and dad. I think that will be really helpful for our doctor's office actually has just connected us with somebody that, hopefully that works out well for her. She's also the type that wants to be the the ambassador, you know, that wants to teach others.
Scott Benner 1:01:47
And if she can't find those people, she always has a 52 year old guy with a podcast she can listen to, which I think is just a very crazy pairing. But
Jesse 1:01:57
I tell you what, though, like it, it helps. Like I don't, I wouldn't know what it feels like to be in her shoes with the constant Bree, what's your sugar? Brie, did you dose? Bri, you're really high, you know, like it's constant. And me, and me and my wife try
not to harp on that stuff.
But we're also type A and we kind of, we try to stay on top of it as best we can, yep, without harassing her. But you know, it's, it's that balance. And I think by her taking ownership and listening on her own and really wanting to and doing it on her own is pretty cool.
Scott Benner 1:02:39
Well, Jesse, it sounds to me like you guys are doing really well in my questions. Like, my question would be, just, does it feel that way? No,
Jesse 1:02:47
no. And that's, that's the tricky part. Like, I honestly, and I can't say no, like we, we are definitely moving in the right direction. But it's, it's like, one step forward, two steps back kind of thing. You know, there's been some other things that I would say, mental health wise, are not diabetes related, pre diabetes, like, we had her connected with a counselor for like, you know, at three years old, like, she would hit herself, you know, just saying, like, I'm I'm no good, and would hit herself when we'd say, hey, Bri, can you please clean your room up a little bit of it? I'm just no good. And she would hit herself kind of thing. And it's like so that kind of stuff, you know, has nothing to do with diabetes, but I think the diabetes definitely amplifies things to the nth degree.
Scott Benner 1:03:37
May I suggest Jesse to take a cue from your medical stuff and make sure they're tracking her TSH and her thyroid stuff too. So
Jesse 1:03:46
that was just included in her recent orders. I'd have to look back to see if it was ever previously tested going forward, yes, yeah,
Scott Benner 1:03:55
just because some anxiety and even like personality stuff could be thyroid related mood swings, yeah, yeah, for sure. Just keep that in your head. That's all absolutely yeah. And it also, by the way, a well regulated thyroid makes blood sugars easier to manage, too. That's
Jesse 1:04:12
interesting, yeah. So, I mean, what like, there's a pretty good percentage of diabetics who have Hashimotos as well, right?
Scott Benner 1:04:21
I mean, I don't know what it is, but when somebody tells me they have type one and Hashimotos, I don't go, oh, gosh, really, that's crazy.
Jesse 1:04:30
It's, it seems to be a more common theme,
Scott Benner 1:04:33
yeah. I mean, autoimmune can run in families, and it doesn't always have to be like, I have type one. So you have type one, it could be a number of different things. It just can't. I mean, it's clearly in my family, my daughter's got issues that, you know are not are more than type one. My son has Hashimotos. My wife has thyroid, you know, like, my son will talk sometimes about, like, I'm cold, you know, even though he's really good with his medication is and his TSH levels are great art. Is exhausted without a cytome supplement to her t4 supplement when she's taking her thyroid medications. She definitely is hypermobile to some degree. She's creaky and cracky and stiff and, you know, joints ache at times, stuff like that. Probably not Ra, it's all that stuff, man, like, you know, like, you start, my wife started using a GLP, and she's like, Oh, my inflammation went down so much like just from the GLP medication. She's like, I wonder how much this inflammation is just impacting my life. And I, I 100% take her, you know, at her work,
Jesse 1:05:35
I describe my autoimmune as to sum it up, it's an inflammation disorder.
Scott Benner 1:05:40
No, what it is, yeah. I mean, everything's just essentially there. Listen, this is completely unfounded. Then I have to let you go, okay, but there was a time where there were people running around the diabetes community and they were saying, your beta cells aren't dead. They're just frozen there. There's no room in there, so they can't move. I forget the exact way it was put, right. And now, tomorrow I have an episode coming out with a 50 year old, eight year old type one, who took Manjaro for weight and for insulin resistance, and it works so well for him. He's not on insulin anymore. Like I don't even know what to say about that. Like I'm not drawing a conclusion from it, even I'm just telling you, 50 years old, diagnosed, if I'm remembering his timeline right, he honeymooned for a while, four or five years, then for the last couple years, then the next couple years, like heavy usage of insulin, right where you would expect. Then they put him on manjarno, and he does not use insulin anymore. And he's got auto antibodies. He has type one diabetes, and he'll very likely need insulin again at some point in his life, but for the moment, he's not using it. That's very interesting. Ridiculous. Like a 15 year old girl a couple months ago, her mom came on. She's gone from 70 units a day down to four, and doesn't bolus for meals anymore and took off her pump. Yeah, so I
Jesse 1:06:57
don't know, man, that's impressive. I mean, the thing the amount of studies that are going on now, like you can only hope it's very positive. Gonna figure
Scott Benner 1:07:06
a lot. It's not everything's not gonna work for everybody, but some things are gonna work for a lot of people. And that's that's where you wanna be excited and have people continuing to look Jesse, I'm gonna say thank you right here. This is a great time to stop. I thought you were fantastic. I say this every time after I speak with someone like you there. If there are more men out there in touch with their feelings, please reach out to be on the podcast. I'll even talk to you guys that aren't you're fun too, but I don't get as many men, so I appreciate you reaching out. I really do.
Jesse 1:07:36
Also, I could say is I'm definitely, typically not the emotional person. But in this topic, in this realm, it it got me, diabetes
Scott Benner 1:07:45
brought you there, that's for sure. It got me, yep, let me ask one last question. Is there value in that for you? Like, if you can, like, let go of the part that diabetes is what brought it here. Like, are you happy that you have these connections now, or are they hard to deal with.
Jesse 1:08:01
I think it's one of those things, like, as I get older, you appreciate more and you understand more, and you kind of just, you comprehend it better. But I'm not an emotional guy, so it's not comfortable for me. It's not my wheelhouse. It's not like, you know, I don't enjoy having the, you know, range of emotions, or, you know, whatever it's, it's, it's typical. It's not typical of me, but at the same time in the realm that it's happening, and truly wrapping your head around all that's going on, it just gives you a better perspective. And you just, like, for me, it's, it's a growth type thing, like I'm at that age where you just, you learn from it, you appreciate
Speaker 2 1:08:44
it, and it's, it's helped me.
Jesse 1:08:49
I mean, if I were to take it back, I guess I would probably go back and say no, no emotion, and just get things done and do it my typical way. I think there's no other way for me. Okay, best way to put it,
Scott Benner 1:09:04
oh, that's very honest. I appreciate that. Thank you. Wow. All right, hold on one second for me, but you were terrific. Thank
Unknown Speaker 1:09:10
you. Appreciate it. Good
Scott Benner 1:09:11
times. You
a huge thanks to cozy Earth for sponsoring this episode of The juicebox podcast. Cozy earth.com use the offer code juicebox at checkout to save 40% off of your entire order. This episode of The juicebox podcast was sponsored by us Med, usmed.com/juicebox or call 888-721-1514, get started today with us Med, links in the show notes. Links at juicebox podcast.com a huge thank you to one of today's sponsors, gevok, glucagon. Find out more about Chivo hypopin. OmniPod at gvoke, glucagon.com. Forward slash juice box. You spell that, G, V, O, k, e, g, l, U, C, A, G, o, n.com. Forward slash juice box, if you or a loved one was just diagnosed with type one diabetes, and you're looking for some fresh perspective. The bold beginning series from the juicebox podcast is a terrific place to start. That series is with myself and Jenny Smith. Jenny is a CD CES, a registered dietitian and a type one for over 35 years, and in the bowl beginning series, Jenny and I are going to answer the questions that most people have after a type one diabetes diagnosis. The series begins at episode 698, in your podcast player, or you can go to juicebox podcast.com and click on bold beginnings in the menu. If you're not already subscribed or following in your favorite audio app, please take the time now to do that. It really helps the show and get those automatic downloads set up so you never miss an episode. Thank you so much for listening. I'll be back very soon with another episode of The juicebox podcast. The episode you just heard was professionally edited by wrong way recording, wrongway recording.com, you.
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