#1394 What does Roxanne have?
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Scott Benner 0:00
Friends, we're all back together for the next episode of The Juicebox Podcast. Welcome.
This is Roxanne, who was originally on episode 790 called Roxanne. That title said Roxanne has type one diabetes, psoriatic arthritis, cholesterol, BP, heart issues and more. Today's episode says this, Roxanne has had diabetes for 25 years, a returning guest from episode 790 she's here to talk about the radian study, and that she thinks she might not have type one diabetes, but has type two that led her to using GLP medications, and this has done so much for her. Levered out, her iron levels slightly decreased, her arthritis. She's lost 100 pounds. There's a lot going on here. Lung collapse, GLP does she doesn't. She have type one diabetes. So much happening in this episode of The Juicebox Podcast. If you or a loved one was just diagnosed with type one diabetes, and you're looking for some fresh perspective. The bowl beginning series from the Juicebox Podcast is a terrific place to start. That series is with myself and Jenny Smith. Jenny is a CD CES, a registered dietitian and a type one for over 35 years, and in the bowl beginning series, Jenny and I are going to answer the questions that most people have after a type one diabetes diagnosis. The series begins at episode 698, in your podcast player. Or you can go to Juicebox podcast.com and click on bold beginnings in the menu. This episode of The Juicebox Podcast is sponsored by us Med, us, med.com/juice, box, or call 888-721-1514, get your supplies the same way we do from us. Med, today's podcast is sponsored by the insulin pump that my daughter has been wearing since she was four years old. Omnipod. Omnipod.com/juice, box. You too can have the same insulin pump that my daughter has been wearing every day for 16 years.
Roxanne 2:07
On Roxanne, I've actually been on the podcast before.
Scott Benner 2:11
Yes, you have Roxanne. Your name is one that I actually recall, like it popped up in front of me, and I thought, I know this person. I've recorded with this person before. I was so proud of myself when I knew tell people what episode you were on. It was,
Roxanne 2:26
I want to say it was 790 okay, what
Scott Benner 2:28
was it called? Do you remember? I think it was just called Roxanne, and you have type one diabetes?
Roxanne 2:36
I thought that's what I had, but apparently now they're thinking I have type two instead?
Scott Benner 2:41
Really? Yes, oh, hold on a second. Roxanne has type one diabetes, psoriatic arthritis, cholesterol, BP, heart issues and more that. Boy can't, can't beat that as an opening and that was episode 790 but you're saying now they don't think it's type one. Yeah, go on.
Roxanne 3:05
Well, I was in, I did the radio study, and I don't have any markers for type one. Okay.
Scott Benner 3:11
I mean, is that? I don't really know, like, can you not have type one without any markers? Or that's what
Roxanne 3:18
I'm not sure. But talking to my endocrinologist, she says, I'm probably more type two, but because I was 18 when I was diagnosed,
Scott Benner 3:26
they may have they just didn't look any farther. I mean, that seems so backwards from what you normally hear, but yeah, fair enough. What do you think?
Roxanne 3:39
I figured it could be both. Both my parents had type two, or have my dad has it, my mom had it. So it's, I don't I've always had insulin resistance, issues with my PCOS and everything. So I'm like, I don't really care. It's treated the same way. So that's like, the label doesn't exactly matter to me.
Scott Benner 3:58
Okay, you did this study. Do you remember what they like? It's the rare and atypical diabetes study. Is that right? Or something like that? Yep.
Roxanne 4:07
Okay, yeah, they did lots of blood work and had me come down and do a glucose tolerance test.
Scott Benner 4:12
How old are you now?
Roxanne 4:14
I am 44
Scott Benner 4:17
so you've had diabetes, 2425 years, somewhere in there. Okay, what made you go get the study done?
Roxanne 4:24
I heard about it on the one of the podcast episodes, and I was just curious to see if I would qualify for something like that and just what it was about. So I looked into it interesting, and they had one here in town, so I didn't have to go too far.
Scott Benner 4:38
Wow. How long ago did this happen for you? That was fingers in, 2320 23 about a year or so ago. Okay, so nothing changed about your about your management.
Roxanne 4:49
The only difference was I had started the Manjaro by that
Scott Benner 4:54
point. Oh, how did that impact? Is that why you're back on Yes, yeah. Okay, well, huh? Geez, I didn't expect that. How did it make you feel when, when you got this news?
Roxanne 5:09
I was like, Okay. I was like, because I've always gone back and forth and said it could be one and a half because they were never sure what to call it. So like, Okay, I really don't care which one it is. It's like, going, we're still, I'm still using the same things to treat it as I was before.
Scott Benner 5:24
I mean, listen, obviously I'm not a doctor or anything, but I thought it was possible to have type one without the autoimmune markers.
Roxanne 5:32
I think so, but I don't know how they would know for sure one way or the other. That's what I was because I looked up stuff after I saw that I had no antibodies, and I'm like, Okay, well, is it possible, so I'm
Scott Benner 5:46
not really sure. Is there no one to go back to like at the study and say, can I get more information about this or like, because you're stuck then going to your Endo, who may or may not have experience, right? Yeah,
Roxanne 5:58
I was like, I may reach out to them again and see because I know they wanted to talk to my like my immediate family members, and do testing interesting on them, but none of them have really been. They were like, I want to do that.
Scott Benner 6:13
No, thank you. I got diabetes. I don't care which one it is, or I don't want to know I'm getting it or something. Is that basically the response you got back. Yeah, it's hard to not understand their perspective, that's for sure. Yeah, listen. Roxanne, I just want to jump in here, just so people know that, like, your microphone is going to sound a little different to them. Your can I tell them how you're set up? Yeah, that's fine. Okay, so you're wearing hearing aids that are directly connected to your phone, and that's how we've got this connection. So if, yeah, if we have like, a little crackle or something at the end, like, that's what's going on, no big deal. I mean, let's give them an overview for a second. Though, you lived a long time taking I mean, I'm assuming you've done shots. You probably won a pump all that. Oh yeah. And your management, in your mind, is basal insulin coming from a pump. You're bolusing for all your meals. It's not like you're using a I mean, what was your average total daily insulin before the Manjaro I
Roxanne 7:09
could use 200 units in like two days. Okay,
Scott Benner 7:13
so you're using a fair amount of insulin, but you said also PCOS, yes. Okay, obviously, probably since you were young, it's been on you. Oh, yeah, yeah, insulin needs always on that side.
Roxanne 7:28
At one time I was on you, 500 insulin. Oh, okay, geez. That was before the gastric sleeve gotcha,
Scott Benner 7:35
and then where there was weight loss that that helped with that.
Roxanne 7:40
Yeah, I was 214 at surgery, got down to 170 and that's where it kind of got stuck at. Was 170 which is why we looked into the Mon Garo. Okay, so
Scott Benner 7:51
you lost 44 pounds after when was the surgery? It was 2016 2016 you have the surgery. The 44 pounds comes off. And how about how long
Roxanne 7:59
I actually like it may have gotten down a little bit lower than that, but eventually it creeped back up to 170 I think I got down to 150 Oh, was my lowest weight.
Scott Benner 8:10
Okay, so then you live 2016 etc. When does someone come on and talk to you about a GLP, my daughter is 20 years old. I can't even believe it. She was diagnosed with type one diabetes when she was two, and she put her first insulin pump on when she was four. That insulin pump was an Omnipod, and it's been an Omnipod every day since then. That's 16 straight years of wearing Omnipod. It's been a friend to us, and I believe it could be a friend to you, omnipod.com/juicebox, whether you get the Omnipod dash or the automation that's available with the Omnipod five, you are going to enjoy tubeless insulin pumping. You're going to be able to jump into a shower or a pool or a bath tub without taking off your pump. That's right, you will not have to disconnect to bathe with an Omnipod. You also won't have to disconnect to play a sport or to do anything where a regular tube pump has to come off. Arden has been wearing an Omnipod for 16 years. She knows other people that wear different pumps, and she has never once asked the question, should I be trying a different pump? Never once omnipod.com/juicebox, get a pump that you'll be happy with forever. I don't know how you guys order your diabetes supplies, like CGM pumps and testing equipment, but at our house, we use us Med, and I'm gonna walk you through the entire process right now. I'm looking at the email from us Med, it says it's time to refill your prescription, dear Arden, please click the button below to place your next order. Then you click the button that was it. Two days later, I got this email, thank you for your order from us. Med, we wanted to let you know that your order and it gives you an order number was shipped via UPS grind. Confirmed you can track your package at any time using the link below. And then there was a link, and then it showed up at our house. Now I'm going to walk you through the entire chain of events. On the 29th which was the Saturday I clicked on the email. On that Monday, the first I got an email that said the order had been sent four days later on the fifth the package arrived. If you can do it easier than that, you go get it. But if you can't, us, med.com/juice, box, or call 888-721-1514, get started today with us. Med, get your diabetes supplies the same way we do
Roxanne 10:41
that was my actually, it was my surgeon from the when I followed up with him one year because I found I was going back to see him to get blood work. And every once a year, and he mentioned the ozempic. How long ago was this? That was 2022,
Scott Benner 11:00
all right, so a couple years ago, he says, Hey, have you heard about this GLP medication? Yeah. And you said, What'd you tell him?
Roxanne 11:08
I said I hadn't, but he told me to ask my endocrinologist about it. So
Scott Benner 11:12
I did. They gave it to you, no problem. Yeah. She was like, okay, we
Roxanne 11:17
can try that. All right, but she decided to do monjaro instead? Because it might, she said, it would have a better outcome.
Scott Benner 11:24
You might lose more weight on it. Is that what? She said, okay, yeah, so you start shooting that in 2022 where's your weight and what's your daily insulin like? Then when you be right before you started, and what is it now? Okay,
Roxanne 11:37
it was February of 2023. Is when I started it, because it took me a little while to decide to ask her,
Scott Benner 11:45
because I wasn't sure. Okay, I
Roxanne 11:46
wanted to go that route, but in February,
Scott Benner 11:48
hold on, Roxanne, let's stop there. What? What slowed you down? Where were you unsure?
Roxanne 11:53
I just wasn't sure about it yet. I was like, so I did some research, and then I was like, okay, because I think it was the end of 2022 when the
surgeon suggested it. So it took me a couple of months to kind of figure out
what I wanted to do with it.
Scott Benner 12:11
Wanted to go slow and make sure you understood what what you thought it was before you just jumped in. I say, okay, okay, so you go to the doctor. Doctor says, Cool, that day before you start total daily insulin and your weight.
Roxanne 12:24
I was 170 and then I was probably 60 to 70 units a day, okay?
Scott Benner 12:31
And you start with, I mean, what do they start you on? Point two, five of my point two,
Roxanne 12:37
five, okay, and then I moved up to the five, and I haven't gone farther than the five.
Scott Benner 12:42
Oh, okay, so you started at point two five. Did you do that for a month or longer? And it was a month, all right? And did you have any impacts in the first 30 days? It was a little bit of
Roxanne 12:54
nausea, but not much. It actually wasn't that. I didn't have that bad of a of side effects. So what
Scott Benner 13:00
about on your blood sugar or your insulin needs?
Roxanne 13:04
Oh, there was a definite decrease right away,
Scott Benner 13:07
okay, enough that you had to make adjustments to your settings. Uh huh. Okay. Did you lose any weight the first month?
Roxanne 13:15
How much? I do not remember. It's been a while. That's okay.
Scott Benner 13:19
And then you move up to the point five. Is there another decrease in your need for insulin? Yep,
Roxanne 13:26
it decreased again. And then it's just kind of been going and then the weight was slowly going down. By it was October of 23 I was down to 120 pounds. Holy
Scott Benner 13:40
Hannah. Wow, you lost 50 pounds. Yeah, geez, good for you. Congratulations. And then
Roxanne 13:47
I've been able to maintain that for the most part. This last year or so has been very crazy, health wise. How so summer of 23 in my ferritin was four, and so I ended up with an iron infusion, and that fixed that part. In March of 24 I got pneumonia, which then led to my lung collapsing. Oh, my God. And then two weeks later, it collapsed again. What
Scott Benner 14:16
the hell yeah? Like a bounce house that won't stay up,
Roxanne 14:19
yeah? So they ended up going in and having doing surgery to adhere the left lung to the wall of rib cage. Is
Scott Benner 14:27
that what they do to keep it from collapsing? Uh huh. Wow. And the weird thing
Roxanne 14:31
is, my mom had her lung collapse at the same age,
Scott Benner 14:35
huh? Well, way to keep up trends,
Roxanne 14:37
good job. Yeah. I'm like, we were thinking about we're like, Wait, mom is about this age. I was like, and hers was kind of spontaneous. So the pulmonologist is doing a genetic test to see if it's a genetic a rare genetic disease. So I won't have results for that for
Scott Benner 14:54
a while. Well, what kind of surgery is that? How invasive is it?
Roxanne 14:58
They put two whole. Holes in the side of my ribs and go in with cameras. What
Scott Benner 15:04
was the recovery like?
Roxanne 15:06
It's like I would have gone back to work in a week, in less than a week, but they
made me stay home, okay, or at least a week.
So I think it was a week and a half. But
Scott Benner 15:16
you felt better in a week? I felt better. Yeah, all right. Well, that's good news. Let's go back for a second to you losing like you're 120 pounds now,
Roxanne 15:25
I am actually at 115 because I was down to 105 when I left the hospital. Roxanne, how
Scott Benner 15:31
tall are you? 5253? Is this a good weight for you? I'd
Roxanne 15:36
like to be back up to 120 as of this morning, I was 115 so that's been good. So it's going back up.
Scott Benner 15:44
Are you having trouble eating? No, no, so you're eating okay, but you lost weight. Why do you think you lost weight?
Roxanne 15:50
I think it was just the stress of the all the medical issues at that point.
Scott Benner 15:56
Yeah, okay. Did your iron ever go back down? No, it stayed
Roxanne 16:01
back up. It stayed up pretty much. I follow up with a hematologist every
Scott Benner 16:06
six months. Had your iron ever been low prior in your life? Not that I know of. Okay, I'm doing some comparison shopping here. And of course, if you listen, you know that my iron had been low for like ever, and then it stopped getting low when I started taking zepbound Now, which is Montana, so it changes the absorption. Or for me, it, you know, I'm sure it doesn't do it for everybody, but I was clearly not absorbing something, and now I am from my food, so it's awesome. Do you feel like I your health issues, aside the pneumonia and etc, do you feel different? Like, what's it like to have lost that weight?
Roxanne 16:43
It's interesting because I don't, I can't seem to see myself as being that small anymore, as I still think of myself as being bigger. Oh, do
Scott Benner 16:53
you want to talk about that? Roxanne, I have that sometimes. Oh, my God. So one time I came out to my wife and I said, I walked out in the room, and I was like, I said, Does this ever happen to you? Sometimes I turn the corner when I go into the powder room and I'm like, you're met with a mirror before you get into the room, and it doesn't look like me. Yeah, that happens to you? Uh huh, yeah, all
Roxanne 17:15
the time. Because there's all these things I can see that I've never been able to see before, like, what all the different bones, like, the bones, like, I can see things and my veins are very, very noticeable now, yeah,
Scott Benner 17:29
I sleep on my side often. And I'll, kind of, if I sleep on my left side, I will sometimes, with my right arm, reach under and, like, kind of tuck my fingers under my chest, like on the right, on the left side. And every time I do it, I think, what is that? And I have the same thing in the shower when I wash my chest and I go down, I like, there's this moment where my, like, you feel something, and my my brain's like, what is that? And it's my rib. Yeah, it throws me every time I touch it like it's getting it's happening. I don't want to make it seem like I can't learn it's happening less and less but, but, you know, just wash your chest, roll down. God, what's that? Oh, that's my rib. And then keep going. It's the weirdest thing. Yeah, it's
Roxanne 18:15
very weird to I'm just like, Oh, I was like, that's what that looks like, I've never been able to see collar bones before. Yeah.
Scott Benner 18:23
Is that what this is? Gosh, at five two, you said,
Roxanne 18:27
like, somewhere between five two and five three,
Scott Benner 18:31
you went from 220 to now 115 Uh huh. My God, that feels like a miracle, doesn't it? Yeah. Do you ever have that feeling of like, oh, I should I wish I would have done this before the bariatric surgery.
Roxanne 18:44
I don't know I was like, because the bariatric surgery was so great to begin with, that helped kick things off and at least, but yeah, I kind of wonder. I was like, what would have happened had we tried something like that first? It's
Scott Benner 18:56
amazing. Has it had any impacts on other health issues,
Roxanne 19:02
I think so my TSH has gone down. It's like point six.
Scott Benner 19:08
Do you think that's the weight and, yeah, I
Roxanne 19:11
think that's just from the weight loss. Okay? Because they've had to adjust my Synthroid levels a little bit. Yeah,
Scott Benner 19:17
we've been watching that for Arden. Actually, she's going to get a blood test pretty soon for that, because she lost weight with GLP as well. She's almost in the same boat as you are, like, she got it back now. But there was a moment where she, we were, like, it's a little too much loss, and she was able to, you know, she put some back on, no problem. But what about the arthritis I'm I'm, like, so interested to know if it helped that
Roxanne 19:40
a little bit, I still just have a low level of pain. I think also some of it's just been cool, started back up with work and everything. So I've been doing more movement than I had been this summer because they made me take the entire summer off. They wouldn't let me work this summer
Scott Benner 19:58
because of the lungs. Uh huh, yeah,
Roxanne 20:01
which was a good thing,
Scott Benner 20:02
yeah. Can you tell people what kind of work you do? I
Roxanne 20:05
am a teacher of the visually impaired. Okay,
Scott Benner 20:07
well, well, well, Roxanne, we are into a thing here. Okay, like I wanted to. I'm trying to decide which way to go. Do you have anything you want to talk about before I start picking through this summer,
Roxanne 20:16
I actually went off of insulin completely. I had no injected insulin from just until last week. Last week I put my pump back on because the stress of work was making my excursions after meals go up higher than I wanted to. Wait,
Scott Benner 20:32
wait, wait. So you started taking Manjaro, you lost a bunch of weight, and then you intersected a moment where you're like, I don't need insulin.
Roxanne 20:41
Yeah, my endo wanted to try, at my appointment in June, my endo wanted to try not doing any insulin, any injection insulin, because I was only using like, 12 units of basal a day. So just basal or 12 units total a day, okay, so I wasn't using much. Most of my basal was turned off the I switched from op from Omnipod five to the Moby in March, and so looks like both opera movements worked about the same, but I like the control IQ a little bit better, okay, but it's most of the time, like at night. I don't get any basal with the pump program, because and my blood sugar stays about 86
Scott Benner 21:24
so you're wearing an algorithm. You're wearing the Moby this pump. It's deciding you don't need anything overnight, or you're telling it, I don't have a basal rate overnight. Or
Roxanne 21:35
it was deciding it. But then in June, my indo switched some settings around and made the basal at night zero. Most of the time it wasn't giving me anything, so she just went ahead and made it zero. Okay, and that's to do something at will,
Scott Benner 21:51
yeah, but in the beginning, you were still bolusing at meals, and now you're not doing that, until recently again, yeah, until last week. How long was that gap where you weren't publishing for the meals? It was
Roxanne 22:03
the 15th of
Scott Benner 22:05
June through last week to September. June, July, August, September. Like four months,
Roxanne 22:13
yeah, up to maybe two and a half. About
Scott Benner 22:16
two and a half months, okay, what did your doctor have to say about that?
Roxanne 22:19
I know that's a good question, because I haven't talked to her since I did it okay. I was like, and she gets the reports and everything. I go see her in November,
Scott Benner 22:28
and that's on a point five Manjaro once a week. Geez, yeah, you might disappear, and if you used any more of it, do you ever have the feeling like, point five is too much? Or you think it's pretty good?
Roxanne 22:44
I think it's good. But that was one thing we were going to talk about, was looking at maybe adjusting how often I shoot, I take it like to to like, lengthen the time, but between things or move the dose one or the two, is what some of the things he was going to look at when, when I come back,
Scott Benner 23:02
yeah, so you think you might elongate it, not take it every seven days. Yep, that's
Roxanne 23:08
what she was saying, to maybe take it every 10 or every other week. Here's
Scott Benner 23:13
the way I've been, because that's the thing that gets brought up. I mean, everyone's limited by the pen, you know, the dose, basically, right? So when doctors get to the point where they're like, Ah, it's probably too much for you, then they'll talk about, like, maybe we could stretch it out 10 days, something like that. But I've taken the medication and it wanes at the end, right? So it's not full power seven days. It's no, today's my sixth day, and I got up this morning and I thought, Oh, I'm hungry, but I wouldn't have thought that three days ago, like three days ago, I would have woken up and not been hungry. I would have eaten, but I wouldn't have been hungry. And not that I'm saying it's bad to be hungry. I'm just saying that like you can tell it's not working as much. And if I got it in my head today to have like, burger and fries or something, I could probably get it. I could eat it without a problem, but I couldn't do that on like the second day or the third day. And my point about that is, is that if the if the half life of the drug, if it's not actually covering all seven days like that, and you're having other implications from it, like meaning if, if you are being helped with your arthritis because of anti inflammatory reasons, or if it's making an impact on something else, right, like your PCOS, for example. Are you seeing any benefit from that?
Roxanne 24:30
A little bit? Yeah. I was like, the decrease in the insulin resistance has been helpful.
Scott Benner 24:37
Yeah? Then the question is, is, do you really want there to be a gap. And do you Yeah, right. And do you start talking? Yeah, right. So you had that thought when she said, maybe we can go longer, you were like, maybe we shouldn't, right? Yeah, because I
Roxanne 24:51
got the same thing. But it's like, I usually take it on Wednesdays, so by Tuesday I'm actually hungry on Tuesdays. Yeah? Or the rest of the time I'm not hungry.
Scott Benner 25:01
Do you see your insulin needs rise at the end of the week? Sometimes
Roxanne 25:04
I've noticed that has been the days where it goes up a little bit, goes up and stays up a little longer than I would like it to.
Scott Benner 25:13
Do you ever notice? Has it ever fallen? But this is a lot of paying attention. But have you ever gotten your peer I'm so sorry to ask about your period. Have you ever got, have you ever the dumb job I have? Have you ever gotten your period and been like at the back end and thought, Oh, my cramps are worse, or the bleeding is worse, or anything like that?
Roxanne 25:32
Not usually okay, because mine's rare. Mine's gone back to being sporadic again, so I'm not sure if it's perimenopause. Doing that piece again, because it was coming regularly for a while. Okay, until the summer, and then it started every two months again.
Scott Benner 25:50
How old are you?
Roxanne 25:51
44
Scott Benner 25:53
got this perimenopause. Word won't leave me alone. My wife's 50. Jesus. I hear it everywhere. I'm so hot, perimenopause, I'm sweaty. Perimenopause, I'm cold, perimenopause. I'm like, I Okay. I saw it like, I'm so sorry. Sounds horrible. Okay, so I haven't had anybody on yet to talk about this, and we're still just figuring it out for Arden. So I have no I don't know that I have any valuable input on this, but, you know, I've talked about this a little bit on the podcast, but it's probably not out yet. So funny how the time shift works. I heard somebody say something today, like somebody online said, I know this is this, right? And I was like, Oh God, I recorded that six months ago. That has nothing to do with that, but I see that you're drawing a connection to it, because it's like, it feels like I probably just said that three days ago, but I said it like months before it's anyway, it's interesting. Manjaro for Arden, you know, we're moving her up, moving her up, like, trying to get it to the right place. It's perfect on her blood sugar. Like, if, if her blood sugar was the only consideration. She was using five milligrams of Manjaro, and it was beautiful. And I just mean, blood sugar wise, blood sugar is perfect. Like, just couldn't get an excursion, like, you almost didn't have the Pre Bolus of, you know, blah, blah, blah. Like, there's no lows later, because you're barely using, you know, you're barely using any insulin, right? Just super smooth. But she's like, Yo, I can't eat. We're like, wait. She's like, I am just never hungry. She's like, I'm eating, but like, I'm never hungry. So we're like, Okay, well, we don't want that. Obviously, she was away at school, and she was losing, you know, she was losing weight, and, you know, you kind of don't see her the same way, like you're looking at it through face time or whatever. But then she started being like that, my pants don't fit. Like, you know, like, we're like, oh, okay, hold on a second. Like, she didn't have a scale with her, you know. Like, so we're like, All right, so like, Let's get you home. Got her home. Said this on the podcast already, she was about six, seven pounds under where she should have been. And, you know, we spent a little bit of the summer, just saying, like, all right, well, like, let's just, you know, eat on purpose. Like, that stuff, because I've, you know, used it for that, and it's what you have to do some days. You got to just tell yourself to eat, you know. But it just wasn't working. So I'm like, All right, well, we want to get your weight back up, so just stop taking it. This week, she stopped taking it, and she's like, my god, Roxanne, like, on day two, she's like, do you anybody want to go out to lunch? We were like, well, she was so hungry, you know, and she had her appetite, so she's super excited, and she's eating stuff, and she gained weight. And we're like, All right, well, now you're, we've got your weight back up, but your blood sugar's, you know, we've been managing it now with, again, a lot more insulin to make up for the fact that the GLP isn't there. And so let's get you back on this. But if we just hit her with the five again, like the two and a half wasn't enough, right? And the five was too much. So I had someone, a friend, tell me, look, I I'm micro dosing my GLP. And I was like, oh, that's like, how did, how did you work that out? And so it's pretty, a fair amount of, like, YouTube videos on all these different things that people are doing. But in the end, you can buy sterile vials and inject the pen into the vial and then use an insulin needle to take it out, oh, and then adjust your dose, right? So we didn't know where to begin. So, you know, we obviously talked to ardents Doctor and worked the whole thing out, and we just decided, like, we're gonna start with, like, a half of what's in the vial. So shot it in, drew out half, gave it to her, truth be told, she didn't have any, didn't change her eating, which was great, but I didn't see any real impact on her blood sugar. So then you're like, yeah, like, Okay, well, let's just move up. So the next week, she did a little more, did a little more. I think we're in like, the fourth week of it now, and. And we're only going up by bits. So to give context to it, though, there's no like, this is no dosing strategy for anybody. We just went to half, like, we basically injected it into the vial. Figured out there was about 30 insulin units worth of of the GLP in there. Gave her 15 of them. Didn't work next week. We were like, do 18? Like, we didn't know, you know, like, so like, 18 didn't really work. This week was 20. I'm seeing it impacting our blood sugars now. So next week we'll go to like, 22 and it's a slow process, but we don't want to jump too far, you know what I mean. And so, and we're and we're adjusting as we go, we'll try. 22 we'll try. We'll keep going. And who knows what the answer is gonna end up being like, maybe, I don't know, but I know other people heard putting little bits in every day, like, instead of giving themselves all of it in one shot, I don't and then I've heard people say, Oh, I tried that for a while and it didn't work. But my point is, is that everybody's out there trying to figure out how to dose this for themselves. When they're in this other situation, they're not just trying to lose weight or they, you know, it's not type two diabetes, but it's tight, it's type one. And they're trying to find this balance between is it help? Because it helps Arden with her PCOS, and it helps her with other stuff. And I noticed her not rubbing her wrists as much and stuff like that. Like, if you ask her about it, I don't know what she would say, but like, you know you're she's your kid. You've been looking at her for a long time. Like, you know, Arden's got creaky wrists, and she'll rub them. And sometimes, you know, you don't see her do it as much. Or you know her, you know, is this, you know, helping your periods. And she'll be like, I don't know, Dad. I'm like, okay. But then she came off it, and she's like, Oh, my cramps are terrible. I'm like, Uh huh. So, like, it is, I think it's helping her with a number of different things. It sounds like it, yeah. And it's all just, you're just trying to figure it out. And because the doctor's like, I don't know, try this, you know, because I don't know, I'm hoping that one day they do studies on all of it so they can dose like that. You know, directly from the doctor. I'm assuming one day they'll give you vials of it, and you'll draw it up and and use it that way, if you have type one, or maybe type two, or anybody who knows, like, I don't know, it's interesting. And it's still in its infancy, really, even though it's been around for so long. Anyway,
Roxanne 32:24
my sister has been taking a natural glps type supplement, what? And she's noticed some benefits from that.
Scott Benner 32:33
What are we talking about? You know, what's called,
Roxanne 32:35
I'm trying to remember what it was, but something one of my bariatric websites think they they were, they noticed would help.
Scott Benner 32:42
But what the neighborhood is, let me see if I can figure out what you might be talking about. So could it be bourbon? Could it be it could be bitter melon, like some formula
Roxanne 33:00
that has a bunch of that has something they fit, that has a bunch of different things that help stimulate the GLP, I think. But she's been taking that one because she's doesn't have any insurance and can't afford the so
Scott Benner 33:15
she's doing basically a supplement over the counter supplement that people online were like, hey, this could help increase your GLP, whatever production use, etc. Okay, yeah. Well, you know, it's funny, um, I put a post up not too long ago, and I just said any supplements you use doesn't matter how crunchy or weird or like, you know, common, like, could you list them here? Because I've been like, for years, I keep thinking, and people ask me all the time, like, could you have somebody on to talk about supplements? And I'm like, it's hard to know. Like, who really knows what they're talking about, right? Like, so, like, you don't want to bring somebody on who's like, you know, cinnamon, you know, or, you know, true enough. When I Googled what you asked me, bourbon, bitter melon, fenugreek, cinnamon, probiotics, uh, turmeric. Like, best virtual like, these are things that popped up that are just like, Look, these are things that might potentially increase. GLP, one secretion for people. Like, I don't know if it does or not, but what I finally kind of came to was, if I'm waiting for someone to come down from high and say, Listen to me, if you take, you know, I don't know fentanyu, Greek, which I don't even know what that is like, you know what I'm saying? Like, this is going to do that. I don't think that's ever going to happen. So why not let people just say their story, like, I use this thing. I feel like it helps me. I'm not selling it. I'm not telling you to buy it, but it's from my experience, it's worth a shot. Like, I'm gonna do, like, a short series of that for people like, like, look, I don't know if this is gonna help. I don't know if it's a scam. I have no idea. But here's what this person said about it. You know, if your sister found something that was that she feels like is helping her, like, God bless. You know what? I mean? Yeah.
Roxanne 34:59
Yeah, like, I was talking to my my nutritionist, bariatric coach, and she was telling me about that one because I'm because she knows I've been doing the bondaro, and she's like, this is one that I found that'll do it naturally for some people that can't afford it. So I told my sister to
Scott Benner 35:15
try it. Yeah, it's where, I mean, listen, is your sister lost 50 pounds? It's
Roxanne 35:19
like, she hasn't lost much weight yet, but she's only but she says she's noticed differences with her cycle and everything good for her, you see,
Scott Benner 35:27
isn't that that's awesome, like it helped her with something. Yeah, exactly, yeah. Who even cares if it didn't help her with the thing that like? Or if, by the way, if she took it for a month and she's like, you know, this, do a damn thing for me, then she can stop taking it. People at least deserve to hear what other people are talking about. And I don't mean like, in the like, stupid, like, you know, cinnamon takes your diabetes away. Like, not dumb like that. But over and over again, we did that myth series right where, because people, that's a real common thing around diabetes, like that, the joke about cinnamon, but, you know, Cinnamon has been shown to help lower blood sugar levels, but not in type ones. Like, it's not, it's not a replacement for insulin. Like, and those things get confused. So if somebody's taken a couple of cinnamon tablets and they've got, you know, and they see some benefit from it, like, good for them. Like, you know what I mean, like, and it's just, it feels like people want to argue all the time about everything. I mean, that just seems obvious, right? I would think that the first time somebody said, Hey, you know, I took cinnamon and I noticed, I think I have a little more insulin sensitivity. And then some other person comes running in and is like, don't say that. You're gonna kill people. They'll stop taking their insulin, like, and you're like, Oh, my God, well, that was that overreaction to what I just said. And then, you know, years later, there's, there's this side of the argument, that side of the argument. People are online, you know, yelling and screaming about whatever I would say. I don't know if any of these things do anything, but here's what people are saying about it. And here's a real person who listens to this podcast and was like, you know, I take bourbon and I think it helps me. I think it's a net positive to share all that stuff and let people go find out what can or can't help them. Makes
Roxanne 37:05
sense to me, because there's all kinds of things that I see all the time for PCOS and stuff, different combinations of supplements and things to try. And I'm like, Okay. I was like, I'll try it. Yeah. Like, if it doesn't do anything, it doesn't do anything, but it's, it's natural stuff that's not gonna hurt. It's
Scott Benner 37:24
worth a roll. Like, and, yeah, I take your point. Like, you know, maybe someone's trying to make money off you. That would suck if that was happening, right? But, yeah, if you're in a bad enough spot, like, you take a try something and see I, you know, it's funny. Like, as an example, I hear from people, you know, I've athletic greens, or, I guess they want to be called ag, ag one sponsors the podcast, they buy a couple ads a month. I drink it right, like, so I wanted to try a green drink. And I tried a few of them. I couldn't stomach them. I got the Ag one. I was like, Oh, this tastes good, like, and I took it, and I thought, I think this is, like, beneficial for me. I noticed that it is and I feel better. I'm gonna keep drinking it, keep drinking it. And I don't know how much longer after that. But then one day, I get an email and ag ones like, you, you know, we'd like to buy ads. And I was like, Oh, I actually, I actually drink ag one. I was like, awesome. And then you, you know, ads go up and you hear it's snake oil. It's this, it's that, it's a rip off. It's too expensive. If there's it's not right, like, and then there it's somebody else will be like, I drink it, and it really helps me. And, like, in the end, I'm like, Listen, if it helps you, it's great. And if it doesn't do anything for you, then it's not for you. I can't spend my whole life arguing about whether or not a green drink. It's a great way to get your vitamins and minerals and whatever else. Like, it's just this person takes it and says, hey, it's valuable for me. This person doesn't think so. Like, okay, you don't use it and then you do it, like, whatever. It just, it's so weird how it falls apart. Yeah,
Roxanne 38:59
I've seen some of those. And that's the hard part about trying to post things that are helpful, is like, because there's always going to be somebody that's going to come against it the other way, yeah.
Scott Benner 39:08
Roxanne, I went to your Facebook page. You look like a different person. Isn't that something? Wow, yeah. Let's read. And
Roxanne 39:19
I updated things a little bit. Yeah, that was the other thing My nutritionist told me. She goes, You need to update your photo, your photo. So I did some, and it's the one on the profile pages from right after I had surgery, so that, like, the middle of, middle, end of May. Yeah,
Scott Benner 39:36
listen, I have the same experience. People are gonna think that this story is like, old, but it's it happened again. Like, Arden sent me a photo of myself the other day, and she goes, holy crap. Like, look at this. And she's like, you like, fundamentally, don't appear to be the same person. Yeah, it really is. It's crazy. If you would have found me back then and said, How do you look? I would. Not have thought, like, oh, I seem unhealthy. Like, you know what I mean? Like, I just never would have thought. I'm sure there are people would hear that and go, you're an idiot. It was obvious or whatever. But like, I don't know, like, I was used to seeing myself that way, the aches and pains and the other stuff. Like, I thought that was me getting older, you know. I mean, you look back now and you're like, Yeah, it's pretty obvious. Like, you know, my knee hurt because I was heavy, you know what I mean, but it just as you're living, it just kind of doesn't occur to you. I don't know another way to put that exactly. It's been awesome. Like, I just looked at your picture now and before, and I thought that's the same vibe from my picture, like, now and before. Yeah,
Roxanne 40:38
I was like, I found one from like, 2014 from before surgery. And I'm like, I don't even recognize myself in that picture. Yeah. I'm like, Dude, my face was
Scott Benner 40:47
fat when I get dressed in the morning. I'm still, still knocked over that I'm wearing a large T shirt every day, like, you know, you find the tag and you know, you turn your T shirt the right way. And I look at it, I think that's crazy, that this is a large T shirt, and then I put it on, and it doesn't grab me like it makes no sense to me at all. My head got smaller. I wear a different size baseball hat now. Yeah, I've
Roxanne 41:15
got three sizes of pants right now, just because I don't want to go buy too many more pants because, like, I can fit into a size six, but then I have some 10s and twelves that still fit around the waist still, so I'll wear those one sub touch. But it's like this. And then I have some aids. So I was like, I'm like, Okay, what parent? What size is this one? Let me see how well they fit today. And I'm slowly getting rid of the ones that get too big when they fall off on themselves, fall off by themselves. I'm like, Yep, good for you. Too big.
Scott Benner 41:44
I give mine away to, like, to a charitable thing, as I lost, I haven't lost much weight recently. Like, I'm pretty stuck at this spot, and it's my fault I'm not exercising enough. I know that that's the next step to this. And I'm just, yeah, just not getting it, having said that, like, my wife, like, will look at her sometimes she's walking through the house, and I'm like, Are you, are you trying out to be a circus clown? Like, what is happening right now? And she's like, what? And I'm like, your pants. She goes, Oh, I know they're falling down. And I was like, yeah. I'm like, why don't you switch? And she's like, I will. I will. She does it very she does it slower than I did. Like, I left the size, and I was like, I took the clothes, and I was like, I am never gonna need you again. But she's a little more careful about getting rid of her clothes. But she's just, it's ridiculous, like you could, I genuinely think I could put, like, a medium sized child in her pants with her sometimes I'm like, Kelly, get rid of those. It's so life changing. Seems like just like a but not like, just the stupid thing to say, but it really is
Roxanne 42:45
like, I still go into the stores and have to remind myself I don't need to go towards the bigger side stuff anymore, and I can actually, we went on a cruise this summer, and I actually bought dresses for the first time. Oh, that's awesome. Different ones. This leaves listing. I'm like, Oh, this is kind of cool. Yeah, I was never, I was always too big, but I didn't feel comfortable wearing a dress, so I got all kinds of cool new dress clothes.
Scott Benner 43:10
And, yeah, it's awesome. I one of my great moments was like, it's like, I don't know, like, two summers ago or and I was at my my mother and father in law's house, and they have like, a pool, and we were sitting around, and I don't get by a pool very often, and they have like, you know, these like, kind of tall bar chairs, but they're kind of like, you know, springy, and they lay back a little bit. And I was like, sitting in the chair, and I brought my feet up and put them, like, on the bottom of the seat, and I was kind of sitting there with my knees up hit me out of nowhere. I was like, I've, I've never done this in my entire life. Like my thighs would have been pushing my stomach. I wouldn't have been able to breathe if I sat like that, you know. And I was like, Oh my God, that's so crazy. And it seems like probably the dumbest thing to people, but like riding in a car and you don't get sore, or, you know, on a long trip, or, like, this does the littlest things, Oh, yeah. It's so much less about how you look and much more about how you're feeling and how you're interacting with the world around you. I think those are where I notice it more. Yeah. And
Roxanne 44:16
I'll run into people that I know, like, I ran into somebody I hadn't seen a while at work, and she's like, I almost didn't recognize you.
Scott Benner 44:25
Has anybody asked you if you're sick because you've lost weight? I have had that, yeah, yeah. I've had that a couple of times. One of them was with a friend, and so after the awkwardness is over, he just looked at me and said, like, I thought you had cancer. He's like, I was so worried when I saw you. And I'm like, Oh God no. I'm like, Thank you, though, I appreciate you being concerned. But he's like, that's how different you look. My primary care
Roxanne 44:47
says I should gain a little bit more weight. She goes, now you're at the bottom of the healthy range. I was like, Okay, well, I was like, I'm working on that. That's like, the Manjaro keeps the blood sugar where it is. I. Stopped losing, and now I'm able to gain and get gain back up, go back up, because I think 120 is where
Scott Benner 45:04
I want to be. Yeah, there's probably some exercise, like some weight resistance exercise, that would help you gain a little weight as well. Oh,
Roxanne 45:11
yeah, that's yeah. I have got to get into doing the strength training to get my muscle tone back. And maybe that'll help with some of the saggy skin. Yeah. Oh,
Scott Benner 45:23
I think it definitely would I have, like, my muscle tone is good. I'm not like, pumped up or anything like that, but I'm not like, jelly or anything either. Like, I know, because a lot of people be like, oh, you know the GLP, you're going to lose muscle. And, like, I think that's people can look into it for themselves, but you're going to lose muscle when you lose weight, no matter what you know. So I do dumbbells and some things to, like, you know, just, I'm not trying to, like, grow or anything like that. I'm just to kind of stay in line with it. And I think I'm doing a good job. Like, I feel, I don't feel weak, and, you know, my muscles are firm, like that kind of an idea. I'm obviously not a body building aficionado or anything like that. But, yeah, I mean, it's, I think it's important to to lift weights at, you know, do, like, lift heavy things when you're losing weight, no matter how you're doing it, but probably, specifically when you're using a GLP, it's probably even more important. I would think, yeah, yeah, oh my gosh. What do you experience with people around you? Have you gotten the you've lost too much weight, are you using that stuff? Like, do you have any of those conversations? Most
Roxanne 46:26
of the time, they just want to know. They just ask. A lot of times they ask me if I'm sick, and they're like, No, I'm fine. Other than, like, healthy stuff, like, it's not, it's like it was on purpose, right? Like I was purposely wanting to get back, get down to where I felt better, because even with the higher weight, I was still having insulin resistance. Yeah, that was the main reason for trying it. The weight loss was just a side effect. Yeah, was a nice side effect.
Scott Benner 46:55
Exactly. It's like a gift inside of a gift. I hear that from a lot of people too, like my body being smaller is great, but I was trying to avoid, and they'll say, you know, I mean, for me, I didn't want to have a heart attack. That's what I was most afraid of. You know, I'm adopted. I don't know anybody I'm related to, so I have no idea if the people I'm related to drop dead all the time from one thing or the next. I have, you know this, this tiny bit of information about my birth mother, which, you know she she died younger during bariatric surgery, like during the surgery, and the way it was told to me. So sorry to like, say it seems like such a bummer, but, I mean, I'm 53 now, I'm fairly past this, but apparently she was kind of forced by her parents to give me up for adoption, and that put her into a bit of a depression for a lot of her adult life. She became like morbidly obese, and then one day, kind of tried to help herself, and then had the surgery. But during the surgery, she had a she went to cardiac arrest during the surgery, she died during the surgery. It's terrible, but I don't know if that's a story specific to her experience, or if the people I'm related to have heart attacks in their 40s, you know what I mean. So yeah, so I'm like, it was Arden left for college, and I had this like moment where I was like, both the kids went to school, like I should try to help myself a little more, you know what I mean. And then that's how all this started. Now, like a year and a half ago, I'm actually going back to speak at something this weekend that I spoke at last I speak at it every year, but so I went last year in September, and by then I had probably lost April, May, June, July, August. This is like six months. I probably lost like 20. I don't know, I'd have to go listen to my diary to figure it out, but 2025, pounds, something like that. You know what I mean, a little more. But today I'm almost 50 pounds lighter. Oh, yeah. And I'm wondering what people will think like if there's going to be another reaction, or if the reaction is just over. You know what I mean?
Roxanne 49:01
Yeah, that's always an interesting thing is, like, is it more noticeable? But, yeah, I wanted to go to that event,
Scott Benner 49:09
but it's a little far from me. I'm sorry. Yeah, I don't want you to travel. We are trying to, actually, I'll be having some conversations this weekend about doing a traveling thing where, maybe, maybe we put up a post a couple months ago now to try to see where, like, Where are their concentrations of people listening? Oh, yeah, I remember that one, right? Who might want to come out. So the people who might be helping me with that, I'm going to get to speak with this weekend, so we'll see what, uh, yeah, see what happens.
Roxanne 49:41
Are you when you came to Austin? Oh,
Scott Benner 49:44
I enjoyed Austin. That was really fun. Yeah, the event was great. Like, the seated like, what we ended up doing in the room, I thought was a lot of, yeah, a lot of fun, and people seem to really enjoy it. But the town was nice. I The one thing I felt I tried to get. Out and do something one night, I just couldn't get in. I was like, oh my god, the lines here are crazy. Got some food, and I went back to
Roxanne 50:06
my room. But like, we try to stay out of downtown Austin. When we go to Austin, I don't know
Scott Benner 50:12
the area, they put me in a hotel. And I was like, Okay. And I'm like, where do I have to because the the talk was at the Capitol, yeah, it was in the Capitol building, yeah. So, like, I was just like, you know, you get there, and you're like, alright, I'll do this tomorrow. Like, you got to figure out, Where am I walking to? Like, where can I get something to eat? And then, like, that night I went out. I was like, God, there's so much going on here. And I just ended up walking around and just kind of experiencing the place, which is, it was really cool. I didn't end up doing anything really, just kind of walking around and taking it in. Yeah, but I'd like to do more stuff like that. It's nice to meet people and say hi and, you know, put faces to like names online and stuff like that. Where are you at, like, with your I want to go back to this so you stop your basal only. You're shutting your basal off at night and and then for a couple of months not even shooting for meals, but then now you're back to shooting for meals again, like, what's your total daily insulin right now?
Roxanne 51:07
That is a good question. I am not sure, can you look and I'm not sure if I can get to it, because it's on the app on my phone. Oh,
Scott Benner 51:16
well, go ahead. If it cuts you off, I'll we'll do it. It's fine. Try it all right, let me see if I can find it, because I'm dying to know, because it's i, if I'm recalling right, you're like, 60 or 70 units. And now then, all of a sudden, you weren't using as much. And for at
Roxanne 51:30
least two months, I had no I didn't even have the pump on. I took the pump off. You
Scott Benner 51:35
weren't even shooting a basal insulin. No, okay,
Roxanne 51:38
yeah, for two months, you wanted to just see what happens if we didn't give any injected insulin, to see what my body would do
Scott Benner 51:45
using a basal overnight now, or is it still zero overnight?
Roxanne 51:49
Nope, it's still, let's see. Let me look at what yesterday was, because
Scott Benner 51:53
we can kind of do the gazentas here and try to figure it
Roxanne 51:56
out. So the rest of the time is point one an hour. Point one way.
Scott Benner 52:01
Yeah, okay, point one. So is it possible you're only getting like, a unit or so of basal a day?
Roxanne 52:07
Possibly because a lot of these on the screen, like starting at, like, what I can see from yesterday, what or from yesterday was like from 12pm it was point one for a little bit, then it went down to zero, then it went back up to point one,
Scott Benner 52:26
and then it auto gave me some
Roxanne 52:29
some stuff, and then I gave myself insulin when I ate. But
Scott Benner 52:34
what are those rough numbers? Like, rough numbers like auto Bolus, and your Bolus about how much is that? Just count it out loud.
Roxanne 52:40
Okay, so it was point five two for the auto Bolus, right? 2.65 was my Bolus. The Auto Bolus again for point three, then point four, five, and then there was nothing else Bolus was until I hit this morning, and I put two in at six for my breakfast, but
Scott Benner 53:01
yesterday was about 3.92 like four units of Bolus, plus what we think might be one or one and a half units of basal. Yeah. So even if we give you credit for like one and a half units of basal, you used about five and a half units insulin
yesterday, yeah, from like 12pm
Yes, versus 60 or 70 before the Manjaro, yeah. Oh, so do you have type one or type two or a lot of, yeah? Yeah, man C peptide is like 60
Roxanne 53:35
or something like that. She said the last time, okay,
Scott Benner 53:38
and you're probably getting a little more. I mean, it sounds like you're getting a lot of bang for your buck out of those beta cells, yeah? Like, whatever's
Roxanne 53:46
in there still, whichever ones are in there, they're working better now. Because, I mean, at one point I was on the u5 100 and still using tons of insulin,
Scott Benner 53:53
yeah, diagnosed at 19 years old. A lot of autoimmune stuff in your, in your in your life, right? You have, boy, yours are the questions like that. I really am super interested in the answers to, like, are you type two? Are you somehow in a 25 year lot of situation, or, you know what I mean? Like,
Roxanne 54:13
yeah, it's, I know. I was like, I'm curious about this stuff. I was like, but there's no nobody wants to look. Nobody knows. I'm like, Okay. I was like, at that point,
Scott Benner 54:22
there's no money in figuring it out. They still sold you a pump in insulin, right? So, yeah, yeah, yeah, boy, that's interesting. Like, you heard the episode with the guy, the 50 year old guy, uh huh, yeah, I did you know 50 years old gets diagnosed. They tell him he has type one six years he's using insulin. They put him on manjarna, lose or zbound, or whatever, to lose weight. He loses a bunch of weight. They completely take him off of insulin for like, two years. He has excursions at his meals, but they're not like, you know, they go up and they come back down again and like, you know, I think he fully expects he'll need insulin at some point. But. Yeah, what a weird story, and not a story you would have heard without these, these injected GLP medications for the wait list.
Roxanne 55:07
Fascinating listen and just, just watching my blood sugar go up and come back down without any insulin was very intro, other than what my body was making, it's finally able to used Roxanne
Scott Benner 55:19
when it was happening for those two months. What an excursion look like, like? What did it go up to? How long did it stay up there? It
Roxanne 55:25
go up to, like, 190 and it stayed for like, an hour or two, and it come back down, depending on what I
Scott Benner 55:33
have, okay, so higher than you would expect if you didn't have diabetes. But not yes, okay, but it comes back down.
Roxanne 55:40
I got to the point where I'm like, I don't like it going up to 200 and stay there, sure. So I decided to put it back on, and which is what she told me I could do if I decided I didn't like it, or just it started going up too high, yeah, put your bum back on.
Scott Benner 55:55
I love you. Just trying things, you know. Yeah. And you haven't stopped taking Manjaro. Since you started taking it, you've been taking it consistently. I've
Roxanne 56:04
been taking it consistently. I was taking Jardiance with it for a while. I'd been taking Jardiance for a while, but she decided in June to stop that. One just didn't need it. Yeah, yeah. She said, with what we were doing, just so that's so while I wasn't injecting, having insulin or anything I was just doing the mondaro Jardiance is a pill, right? Yeah, it's a pill. It was helping with, like the insulin resistance and stuff too, but she thinks it was contributing a little bit to some of the blood pressure issues I was having. Oh, okay, so we decided just to stop it and your
Scott Benner 56:38
blood pressure got better. No, so low. I
Roxanne 56:43
don't know. It's like, I went from having really high blood pressure and on blood pressure medication to them stopping the blood pressure medication and giving me something to make my blood pressure go up. And that didn't really work. So it's still, everybody's like, is your blood pressure always this low when they take it? I'm like, yeah, it's been that way for a while now.
Scott Benner 57:02
Was the journey. It's a daily pill. Yes. Was okay. Did you notice it helped with your insulin resistance before the Manjaro a little bit, little bit. Okay. They're working on a lot of stuff now. But wait, wait, do you see over the next couple of years these, oh yeah, yeah, the pills. They're trying to work out for the GLP and just all kinds of other stuff that's coming down the, you know, they're gonna send up to the FDA and see if they can get, get a yes for so I'm interested to see where it all goes. I don't mind giving myself the shot, like it's fine, but, you know, I gotta be honest, if there was, like, basically a, you know, a pill to take that I knew would keep, you know, my weight where it is, and all the good stuff that comes along with it. And just, I gotta be honest with you, weight aside, just absorbing the iron is such a big change to my life, you have no idea. And it just an increase in my happiness, yeah, you know, just my iron not being low. I know people probably don't think of it that way, but it was a major impediment to, like, just living your life. So, oh yeah, yeah,
Roxanne 58:10
that's like, I'd rather take it if I can take a shot that allows me to have better control of things, and I'm not having to do shots all the time. I'm okay with that? Yeah,
Scott Benner 58:21
right on, right. Okay, all right. Roxanne, is there anything we haven't talked about that we should have? I don't think so. I appreciate you coming back on. Did I ask for people to come back on? Or did you reach out to me? How did this happen?
Roxanne 58:32
Um, I heard on one year would go on one of your weight loss journey, that you were looking for people that were on glps to come on and talk. And so I reached back. I reached out, and was because I'd like to come back on and talk about my journey with the weight loss stuff, because it's been a big difference.
Scott Benner 58:50
Yeah, I'm happy for you. I'm glad you were willing to talk about it. I appreciate it. I get feedback from all the episodes, basically, and overall, like, real positive from those are some people I think don't like the way I talk about my weight. And, you know, I don't know, I tried my hardest, but I think that format was interesting because what you don't like, I guess what you might not get from like, listening, is that, like, sometimes I sit down, it's like, first thing in the morning, I'm like, Alright, I'm gonna take my shot now. And I, you know, you turn the microphone on, I need to take the shot. And you just, you know, it's not like, I'm thinking about it before I sit down. I'm not like, I'm basically in real time going, like, Well, what happened to me this week? You know, like, not a lot, really. Or I couldn't eat here, I eat here, or whatever. Or sometimes, like, just, you get emotional out of nowhere, like, you're like, Oh, I can't, you know, I can't believe this. How have you taken it, like, as a person who've gone through this, has it been, what's it been like to listen to it?
Roxanne 59:41
It's just nice to know some of the stuff that I'm feeling is or things I think, or things I'm going through. It's not just me that it does. Other people have those same experiences as they lose their weight.
Scott Benner 59:53
Okay, that's good, because that's what I wanted from it so and you know, you never hear the good stuff. You only hear like three. People were like, you know, say something bad to you about everything, everything you do. It's so strange. Roxanne, like, you know, yesterday is a good example, right? Well, over 10,000 people heard the podcast yesterday. If you get like, one like people, somebody's like, Oh, you, you know, I don't like this. You're like, oh, geez, that sucks. It somehow you forget that the 9999 other people are like, this really helped me. Thank you. You're like, oh, okay, nice to hear back once in a while like, oh, this was good for me. So I appreciate that excellent. Really cool for you to come back on. I want to wish you continued. Luck is sounds like you're really you're doing as best you can and better, you know, for all the different issues you have, and I'm glad that you're that you're happier and healthier. So exciting. It's nice to see as like,
Roxanne 1:00:50
I still look at pictures, and am I going? How did I was like, that's such that doesn't look like me?
Scott Benner 1:00:55
Yeah, no, I know I now think of myself as looking like this, but it still will startle you sometimes. Yeah, yeah. Because that story I told earlier that was sort of in the beginning, like, while the weight was coming off, and you'd like, see yourself, and you'd be like, That's not me. And they're like, Oh no, that is me. Okay, hold on a second again. That probably sounds silly to people having gone through it, because it felt silly when it was happening to me. I'm like, That's the dumbest thing that's ever happened. Like, how? What do you mean? Like, but there it is. Like, you turn a corner, and you're like, Who is that? And it's, you know, it's you. I will tell you, I'm super excited to go back and speak at this thing I have in the past. Like, I was once at an event, and they had a camera crew in, and I just said to them, like, look, please. Like, you know, can you stand them on top of a 20 foot ladder if he wants to record me, like, hey, could he shoot? Could he shoot down from the ceiling? Do you think as much as you go up there and let it go, because you're there to do what you're there to do, and I'm not going to stand up there feeling awkward in the lead up to it. You do there is that like, oh God, like, I wonder how I'm going to look. Like, I'm probably not going to look great, you know? And this is the first time that I'm gonna go to something like this, and I that's not gonna pop into my head. So it's just been really awesome, like you said. So all right, well, Roxanne, thank you very much. I appreciate, I appreciate you sharing this with us and for coming back on the show. Well, cool. I don't know, I don't know what we'll call this one, but we already use the best title for you, for anybody who's a fan of the Steve Martin movie, but we'll see what we can do. Hold on one second. Okay. Okay.
Us. Med sponsored this episode of the juice box podcast. Check them out at us, med.com/juice, box, or by calling 888-721-1514, get your free benefits check and get started today with us. Med. If you'd like to wear the same insulin pump that Arden does, all you have to do is go to omnipod.com/juice, box. That's it. Head over now and get started today, and you'll be wearing the same tubeless insulin pump that Arden has been wearing since she was four years old. If you're looking for community around type one diabetes, check out the Juicebox Podcast. Private Facebook group, Juicebox Podcast, type one diabetes. But everybody is welcome. Type one, type two, gestational loved ones. It doesn't matter to me. If you're impacted by diabetes and you're looking for support, comfort or community, check out Juicebox Podcast, type one diabetes on Facebook. Are you starting to see patterns, but you can't quite make sense of them? You're like, Oh, if I Bolus here, this happens, but I don't know what to do. Should I put in a little less, a little more? If you're starting to have those thoughts, you're starting to think this isn't going the way the doctor said it would. I think I see something here, but I can't be sure. Once you're having those thoughts, you're ready for the diabetes Pro Tip series from the Juicebox Podcast. It begins at Episode 1000 you can also find it at Juicebox podcast.com up in the menu, and you can find a list in the private Facebook group. Just check right under the featured tab at the top, it'll show you lists of a ton of stuff, including the Pro Tip series, which runs from episode 1000 to 1025 I can't thank you enough for listening. Please make sure you're subscribed or following in your audio app. I'll be back tomorrow with another episode of The Juicebox Podcast. Hey, what's up, everybody? If you've noticed that the podcast sounds better and you're thinking like, how does that happen? What you're hearing is Rob at wrong way, recording, doing his magic to these files. So if you want him to do his magic to you, wrong way. Recording.com, you got a podcast. You want somebody to edit it? You want Rob do?
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