#1481 Melted Squirrel
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
Charlie tricked me into coming back—and now her child has type 1 too.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Here we are back together again, friends for another episode of The Juicebox Podcast.
Charlie is back. She was originally in Episode 1327 called beaver tail. She kind of tricked me and came back on today because she didn't think she did a good job the first time she spoke. But it turns out that since she was on the podcast the first time where, by the way, I think she did a great job, her child has also been diagnosed with type one since then, so we've got some new things to talk about. Please don't forget that nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. AG, one is offering my listeners a free $76 gift. When you sign up, you'll get a welcome kit, a bottle of d3, k2, and five free travel packs in your first box. So make sure you check out drink AG, one.com/juice box. To get this offer, don't forget to save 40% off of your entire order at cozy earth.com. All you have to do is use the offer code juice box at checkout. That's Juicebox at checkout to save 40% at cozy earth.com. I'd love it if you would go to T 1d exchange.org/juicebox, and take the survey. When you complete that survey, your answers are used to move type one diabetes research of all kinds. So if you'd like to help with type one research, but don't have time to go to a doctor or an investigation and you want to do something right there from your sofa, this is the way t 1d, exchange.org/juice, box. It should not take you more than about 10 minutes. US med is sponsoring this episode of the juice box podcast, and we've been getting our diabetes supplies from us med for years. You can as well. US med.com/juice, box. Or call 888-721-1514, use the link or the number. Get your free benefits check and get started today with us. Med, today's podcast is sponsored by the insulin pump that my daughter has been wearing since she was four years old. Omnipod. Omnipod, com, slash Juicebox, you too can have the same insulin pump that my daughter has been wearing every day for 16 years. My
Charlie 2:28
name is Charlie. I am from Canada, and I am here to talk about the last year of my life.
Scott Benner 2:34
Awesome, but before we begin and find out about the last year of your life, you said that you've been on the podcast before, and you thought you were awful. I
Charlie 2:43
was just awkward. And I know why I thought I was through the thick of it, like of my my own diagnosis, right? And which I was doing better than the initial diagnosis, but I was still not doing very well. I was high, I was hungover, I was just so desperate. I was desperate to be the voice that I needed to hear. And I was just, I just sent your style.
Scott Benner 3:08
No, wait, wait, wait, what Episode Do you know what I called it?
Charlie 3:12
I think you called it beaver tails. But I haven't looked. I haven't had time to look and see if it's, if it's up yet. But it was in May, like, I went on to, like, schedule initially, and it was like, six months in advance, and then I went on two weeks later. I'm like, oh, I should schedule. And you had it, you must have had a cancelation, because there was an opening. It was on my birthday. So I'm like, oh, meant to be. It's
Scott Benner 3:36
definitely called beaver tail. Now I'm interested. It says Charlie has gestational diabetes. Had gestational diabetes to all three of her pregnancies, and now has type one. Yeah. Well, wait and you're saying that in this episode, you were here, but you were looking for something for yourself. What do you mean by that? I was just
Charlie 3:55
struggling so much with my diagnosis. I was struggling the fact that it happened, I was struggling to manage my diabetes. I was just struggling. I was mostly lonely. I learned that later I was so lonely I'm a ladder or I mean, I don't know. I've heard different things about Latin type one as an adult, but I couldn't find anyone that could relate with me so well, except for you, you and your Facebook page and your podcast. So, but even then, lacking a bit of the latter stories and like the shock of like the adult diagnosis. So I'm like, I'm going to add my story to that that might help someone
Scott Benner 4:35
else. Oh, I bet you, it did. So how old were you when you were diagnosed for, like, when you got the type one diagnosis, 3232 32 Yeah. How young were you when you were pregnant the first time? How old's the oldest kid? He used five. Okay, then you said 32 you subtract five. You're 27 Yep, you rolled three kids out in five years,
Charlie 4:55
three kids in three and a half years, when, when the third was born, he. Was three and a half, yeah, two to three kids in three and a half years. I know, like
Scott Benner 5:03
a situation where you're in Canada, it's so cold you can't go outside something like that, yeah. I mean, you gotta keep warm somehow I understand. Okay, you had gestational with the first one they said, Oh, don't worry, when you're done being pregnant, it'll go away, yep. And it did. And it happened again and again. And then, well, the third one
Charlie 5:19
was assumed type two or gestational they didn't know, but ended up being the onset of type one. Yeah, interesting. So the Yeah, it was starting before I got pregnant the third time, right? With lots of lows, like as low as 2.6 after a snack. That was the lowest I ever got. And I wasn't on any medication for diabetes. That was just my body doing that. And then the pregnancy made me high. Throughout that third pregnancy, they had an inkling that they saw signs that this, you know, this doesn't seem like gestational so they tested me for the antibodies the week before the baby was born, and it was high. It was very positive and very
Scott Benner 6:07
positive. Hi, Canadians. You use the metric system and the very positive system. Yeah, go ahead,
Charlie 6:14
very positive. Well, I've learned later because I've seen people's I joined all the Facebook pages, and I've seen some other antibody tests, and they're like, barely high, and I was really high so, but they told me that a month after baby was born, and they're like, you're going to be type one, but we don't know when, wow, Charlie. I'd
Scott Benner 6:34
like to point out I think there's only just one Facebook group that the people need to join. But I
Charlie 6:38
agree with that. Now I didn't know that initially take
Scott Benner 6:42
me through that little journey. So you're looking for people who understand your situation that seemed very important to you, even just by the way you spoke about it just now, and you ran around and joined a bunch of Facebook groups. So what was that experience like?
Charlie 6:56
I just searched type one diabetes initially, and then I was searching for Lata, because I was I joined these type one pages, and everything was like, oh, like, how do you get your kid to eat after you dose? And I'm like, That's not my problem. I know when I'm eating. And I'd scroll on, and all these pages were about kids, yeah. And like, I mean, I I don't want to sound cold, I felt for them, but I'm like, That's not my problem. I need help managing this. And three kids, like, almost
Scott Benner 7:26
frustrating that you got close to the information, but then you know what I mean? Like, you're like, Oh, I found people with type one diabetes talking about type one diabetes. This isn't my their issues.
Charlie 7:36
Yeah, problem, right? But I haven't told you yet. Okay, let me give you, like, the key points of my last year, and then you can take it from there. So October, I started insulin. April, I started pumping with tandem. June, our three year old was diagnosed with diabetes. Then July, our three year old started pumping. And then a month ago, I got us both looping. No kidding. So it's been, it's been a year. That's for people
Scott Benner 8:04
who think that Canadians don't go to school. Look at that. I
Charlie 8:08
did not go to school. I'm trying
Scott Benner 8:11
to make a joke here. What do you what do you tell me? Wait, you graduated from some from high school, high school? Yeah, that's fine. That's school, yeah.
Charlie 8:21
And then I ran away and joined the world's largest circus. That's what I did. Did
Scott Benner 8:25
we talk about that in beaver tail? No, we did not. Well, let's do that for a half a second. Wait, what did you you ran away after high school and did what my daughter is, 20 years old. I can't even believe it. She was diagnosed with type one diabetes when she was two, and she put her first insulin pump on when she was four. That insulin pump was an Omnipod, and it's been an Omnipod every day since then. That's 16 straight years of wearing Omnipod. It's been a friend to us, and I believe it could be a friend to you. Omnipod.com/juice box, whether you get the Omnipod dash or the automation that's available with the Omnipod five, you are going to enjoy tubeless insulin pumping. You're going to be able to jump into a shower or a pool or a bathtub without taking off your pump. That's right, you will not have to disconnect to bathe with an Omnipod. You also won't have to disconnect to play a sport or to do anything where a regular tube pump has to come off. Arden has been wearing an Omnipod for 16 years. She knows other people that wear different pumps, and she has never once asked the question, should I be trying a different pump? Never once omnipod.com/juicebox get a pump that you'll be happy with forever. You've probably heard me talk about us Med and how simple it is to reorder with us med using their email system. But did you know that if you don't see the email and you're set up for this, you have to set it up. They don't just randomly call you, but I'm set up to be called if I don't receive. Respond to the email, because I don't trust myself 100% so one time I didn't respond to the email, and the phone rings the house. It's like, ring. You know how it works? And I picked it up. I was like, hello, and it was just the recording was like, us, med doesn't actually sound like that, but you know what I'm saying? It said, Hey, you're I don't remember exactly what it says, but it's basically like, Hey, your order's ready. You want us to send it. Push this button if you want us to send it, or if you'd like to wait. I think it lets you put it off, like a couple of weeks, or push this button for that. That's pretty much it. I push the button to send it, and a few days later, box right at my door. That's it. Us. Med.com/juice, box, or call 888-721-1514, get your free benefits check now and get started with us. Med, Dexcom, Omnipod, tandem freestyle, they've got all your favorites, even that new eyelet pump. Check them out now at us, med.com/juice, box, or by calling 888-721-1514, there are links in the show notes of your podcast player and links at Juicebox podcast.com, to us, med and to all the sponsors.
Charlie 11:06
Not, right? Like, a few years after high school, I joined the world's largest
Scott Benner 11:10
circus. Are you allowed to say the name of it? Or is that what it's called? I
Charlie 11:13
don't see why not. It's called Cavalia. I don't believe it's a thing anymore.
Scott Benner 11:17
Yeah, after they said you couldn't, like, whip an elephant, that ruined circuses pretty quickly.
Charlie 11:22
No, I was a horse circus, though, no elephant. It was, wait, it was a horse circus, yeah, Cavalli. It was a, like
Scott Benner 11:29
traveling rodeo.
Charlie 11:30
No, not rodeo. Like acrobatics, like a Cirque du Soleil plus horses. What did you do in this? I was a groom, so I looked after the horses.
Scott Benner 11:41
Oh, you just wanted to get away from home. Yeah, exactly. How come
Charlie 11:45
all my friends were off to like, university and college, and they're moving on with life, and I wasn't I was home with my own horses working, and I just needed to go somewhere, but I didn't know what to do for schooling. I didn't go to university because I couldn't pick something. And yeah,
Scott Benner 12:03
I picked the circumstance. Was that a good decision at the time? Oh, yeah,
Charlie 12:07
it was fun. It was, yeah, if I could go back, I would do it like I wouldn't change anything. No kidding, but if the job came up now, I would not go. You got
Scott Benner 12:17
these kids in the diabetes and everything? Yeah, it's still going an epic yet soulful theatrical experience that will take your breath away by its beauty. I don't know who wrote that, but I think it's a little incorrect. An uplifting and emotionally charged theatrical production featuring 70 horses and 50 artists. That's the thing you did, yeah, and you groomed, picked up the poo, cleaned them up. Did you shoe the horses? By any chance?
Charlie 12:39
No, there was a farrier for that, but we Yeah, lots of poop cleaning up, lots of horse clean. They're white horses. They're mostly all white horses, and horses like to lay in their poop, and so we had to clean the horses and keep them nice and white and shiny for the show. That's
Scott Benner 12:56
why I don't lay in my poop, because I'm white.
Charlie 12:58
Yeah, yeah, it stains easier. I don't
Scott Benner 13:02
need that problem. You know, I get dry skin. I'm sure it would pick it right up. I am a little ashy. Here I'm looking at my shins. How long were you in? Can we stop calling it the horse circus? What else should we call it? Cavalia is fine. I'm gonna go back to horse circus. How long did you do that for two years? No kidding. Now. Did you make friends there? Did you have so many? Yeah, emotional relationships, romantic relationships at Cavalia. No, nothing. Romantic No, couldn't find somebody. I didn't wasn't looking okay. How old were you when you said I probably got to stop shoveling this and get back to my life, early
Charlie 13:37
20s. Okay, I don't know that's more math. You think I'd be better at math now, I mean all the carb counting, but
Scott Benner 13:44
if you went to college, listen, I think some people are just like, it's not that you're bad with math. I think that timelines I'm not good at it. Like, if you ask me questions about my life, I'm like, Well, how old were you? Then I'd have no idea at all. I feel like a hypocrite asking people, I'm like, How long ago was that? How old were you? Because I would never know the answer to that question. Okay, so that's a life experience. You head home, you meet a boy who helps you knock out those kids, and now all the diabetes is here. Have you looked into those families like your family line? His is there? Auto immune?
Charlie 14:20
No, I haven't dug too deep. I haven't asked too much, but there's nothing in the immediate family, okay? But I just type two. Like, there's type two on both sides of my family. Yeah,
Scott Benner 14:31
there's type two. What about thyroid stuff or celiac or stuff like that? Nothing that I know of like, nothing interesting, nobody got a creaky grandmom? Ra, maybe, no, I'll be damn just you. I
Charlie 14:43
know I I mean maybe, but I don't think so. Yeah,
Scott Benner 14:48
I know it sounds like you're a super spreader.
Charlie 14:51
We just won the lottery. Oh, yeah, woo. When you
Scott Benner 14:54
spoke to me, I'm doing a little math here because your episode came out in October 2024 Which, by the way, already has me wondering how you're back recording this soon, so I have to remember how that happened, but that means that you and I recorded six months prior to that, probably, so, yeah, I don't know. Maybe April, May, May, okay, yeah, and how long had you had diabetes when you signed up to be on the podcast initially in May, five
Charlie 15:19
months. May was five months, right? October? Oh, so
Scott Benner 15:23
you signed up almost right away when you were diagnosed, and then, because you have to wait months to get on. No,
Charlie 15:29
it was only a two week wait. Like I said, You must have had a, yeah, you must have had a because when I first looked, yeah, it was like six months. And I'm like, wow, but then I probably got interrupted by a kid. I never booked it. And then when I went back on to book it, there was an opening two weeks,
Scott Benner 15:45
you skirted the system, yeah. So when I gave you the link, you didn't act. And then when you finally looked at the link, someone had canceled, and you were like, Oh, I can just do this two weeks. Don't tell the other people who are going to be on the podcast. That'll make them very upset. So you jumped on the podcast in April, recorded. It came out in October. It's now really just two months after your episode came out. So about eight months after you recorded, how did you get back on the podcast? Did you just, like, sneak in with the link again, or did you email me? Oh, I used the link. I didn't ask you to come back on. You just decided to come back on. Is that okay? I mean, no, but I'm delighted by it. This has never happened. Charlie, really? Yes, this has never happened before.
Charlie 16:28
No way. Yeah. I was just like, after we recorded. I'm like, I have more to say. So I'm like, and I'll have even more to say six months later. So I just immediately, like, I hung up from you and clicked the link and booked again. No
Scott Benner 16:43
one else listened to what she just said. Just keep going forward and imagine that. That can't happen,
Charlie 16:48
but it, I mean, meant to be, because now, because when I booked it, our daughter wasn't diabetic, and now she is. I have that,
Scott Benner 16:56
yeah. Okay, so let's go back to that moment. Right? You got done recording. Enjoyed it, but thought what? I didn't do a good job. I didn't say everything. Tell me how I
Charlie 17:07
just thought, like, I thought about it. It wasn't immediately. It was that night. I'm like, because I I was thinking about it the rest of that day. And I'm like, I just wasn't good. I was just so I was a tight ass. I was so focused on my notes, I couldn't keep my train of thought like on the tracks, and I I just it didn't feel right. Okay, so I booked so I booked again, Charlie, I'm
Scott Benner 17:30
going to tell you something, and this is a public service announcement to the people who have been on the podcast. Everyone feels that way,
Charlie 17:36
yeah, but I know it wasn't me like I was so I just didn't let you do your thing. I didn't let the conversation roll. I was just, yeah, so I'm like, I'm gonna
Scott Benner 17:47
book again. Did you steamroll me? I don't know. I feel like. I just felt like it was, I mean, that feels unlikely, doesn't it? No, like, I don't
Charlie 17:55
think I like. I wasn't rude. I was just, I don't know, I don't like it. So I'm like, I'll try again. All right.
Scott Benner 18:02
Well, listen, you've got about 45 minutes to fix this up of yours, so let's get going. All right. Also, please no one else do this. I just, please don't do this.
Charlie 18:12
I had no idea. Like, I just, you would send me a link from your website, because you send me a link and I'm like, oh, man, I should have just looked on his website. You
Scott Benner 18:22
can't sign up through the website like you have to get a link from me. That's so basically way, yeah, I don't know. No one's ever thought to go back and click on it again. I guess,
Charlie 18:31
or no one else felt like they messed up and had to try again. No, everyone.
Scott Benner 18:35
No. Charlie, listen most of the time. When I get done and we stopped the recording, the first thing people do is apologize, and I'm always stunned by that. I'm like, What did I not just hear like, we just had a great conversation? Like, what are you talking about? Like, No, I didn't. It's not me. I wasn't. I just think that it's not a normal thing for people to be doing. And you can second guess yourself to death. What I would tell you is that if you found the podcast valuable and it's helped you, it's built by a bunch of people who all thought they didn't do a good job on the podcast, so that, in turn, must not be true.
Charlie 19:15
Yeah, that's interesting, and that's good to know. And absolutely, I benefited from the podcast. Your podcast is what gave me my life back. Like, truly, I was not kidding when I say I was struggling with this, and then I found the podcast, and life became pretty much normal again. I'm glad to
Scott Benner 19:33
hear that, and this is definitely a way for you to, like, make me feel better so that I won't think about the other thing anymore. But that's okay, seriously, let's move forward. So you booked the podcast because you felt like you didn't do a good job, and you've been waiting How long since? How are you back on the schedule again? I booked in May. Oh, okay, May, June, July, August, September. Okay, that makes sense. Okay. So booked in May. You've been. Wait in six months? What do you want to say?
Charlie 20:01
I don't know. I made it through. You made it through the year. Like I just felt like I kept getting these curve balls. And like, with my daughter being diagnosed, she was diagnosed eight months after I was diagnosed, like I was still learning, like, everything I've heard from other people, it takes a year or two to to really understand your own diabetes, and I was only eight months in, and then two months into pumping. So like I was still learning my pump i and then I've got this diabetic three year old now, plus two other kids. It was just like, I just couldn't believe it like one more thing. So you're
Scott Benner 20:41
stunned. There's another thing to do. You're still learning about yourself, yeah, have you even come to grips yet with the fact that you have diabetes? Yeah?
Charlie 20:49
She her diagnosis helped me. It helped me. It gave my diagnosis purpose, because then she's just like, Mommy, yeah, and it has helped her so much. Like I read these stories of kids struggling, they're the only one in the family, and like, she doesn't she has had a really easy diagnosis. I caught it early too, so no, DKA, No, he wasn't admitted to the hospital. And then, yeah, she's just like mommy. So
Scott Benner 21:22
So you feel like that the two of you have this in common, makes that easier for her. But are you also saying that having to care for her is causing you to focus on yourself as well? Not
Charlie 21:33
so much focus on myself? I was trying. I've been trying really hard from the start to to manage this well. I always took it seriously and wanted to have perfect numbers, but her diagnosis made it easier to accept. Because one I was diagnosed, I just all I could. I just kept thinking, like, Why? Why did I get this? And not even just why, but why now, like, when I was diagnosed, my oldest wasn't quite potty trained, so it was even more work than a kid in diapers, and my other two were in diapers, and I was breastfeeding the baby, and I had two bonus two kids for before and after care. They get dropped off in the morning. Yeah, get on the bus here, and then get off the bus here. So I, I had five kids.
Scott Benner 22:18
You're like, I don't have time to time, and
Charlie 22:21
I'm high as can be, I don't understand why I'm high. Or I have this sugar hangover because I've been high forever, or I was high all night, or, or I got too low, like it was, I was on this roller coaster for months, yeah? And it was you. It was your podcast that got me off the roller coaster. My team started me on eight units of basic one. I only needed three. I was down to three. But it took months, and it was, it was you, because I remember, like, gonna do my needle, and, man, I can't. They kept tweaking me. Like, oh, try seven, and we'll try six. So no, I think you need, think you need the eight now and like, up and down, and I just eventually, like, once I learned how valuable your podcast is, get your basal right. And I'm like, Okay, I gotta this isn't working, so I cranked that pen back all the way to three, which it was a half unit pen. So it was a lot of clicks and and I did three units, and that was it. That was what I needed. Are you
Scott Benner 23:23
saying that all those clicks made you feel like, wow, I'm really turning this down. I hope this is okay.
Charlie 23:28
It was like, huge. I was trusting my team, and I didn't know there's, there's so much I didn't know about diabetes that I learned through the podcast. It's
Scott Benner 23:38
awesome. It really is. I got a note this morning from someone and they said, Hey, I saw something about the podcast. Share it out in the world. And they let me know that it was being shared. And you know, if you go and look people are, you know, just talking about how valuable it's been for them, which is really lovely. It was a nice way to start my day. And my thought was, oh, well, this will help combat the feeling inside when you see someone online call you an asshole. Yeah, it's great to hear that from you, that it that it was that valuable, and it got you moving in the right direction. Because, yeah, meanwhile, I want to say I'm joking when, when people speak badly about me online, I honestly, genuinely just think it's part of this. So, like, I don't really think that if you're going to make a podcast, there aren't going to be people who don't like you. You're helping make my day brighter by by telling me that, and I really appreciate that. Thank you. So basically, you listen to the podcast and it makes you think my insulin must not be right. Let me look at my basal first only to learn that the doctor's office and you live in Canada. So are they really a doctor? I mean, is it a, b, like, I don't like, you know what? I mean, like, is it like Dr Doolittle? What are we talking about? Really,
Charlie 24:48
well, my diabetes, okay, my GP is like Dr Doolittle, but my endocrinologist is fantastic, even fully supportive of loop, which surprised me at the time. I was bouncing between three endos and different nurses. Like, every time I booked an appointment, oh, like, every three months was a different dietitian, different nurse, different Endo.
Scott Benner 25:08
She didn't feel like you had any continuity of conversation,
Charlie 25:11
yeah. Like, on one hand, it's like, okay, I wish you didn't have to review my file in this much detail every time. But on the other hand, now I'm getting three different opinions.
Scott Benner 25:21
In the end, the opinion that wins has you with more than twice the amount of basal instantly you actually needed, yeah, yeah. And then in the
Charlie 25:28
end, it was my it was my opinion,
Scott Benner 25:32
the valuable one, exactly. So you so you were being over basal, getting low, eating a bunch, getting high, coming down. And that was just happening over and over.
Charlie 25:41
It was awful. And I didn't know so about basal is that keeps you stable. Because my experience with the pregnancies long acting is for your fasting number. That was it. I didn't know about the stability that never came up with my pregnancy. So I'd wake up high a few nights and go, Oh, it's my basal. And I'd increase it, I wouldn't look back and be like, Oh, maybe I messed up.
Scott Benner 26:05
So back when you were gestational you were taking just basal insulin.
Charlie 26:09
No, I was on meal meal time too. But once
Scott Benner 26:13
you were diagnosed, it did not occur to you that maybe what happened prior is what's impacting me now,
Charlie 26:19
yeah, so what they told me was, like, they always say, with pregnancy, it affects your hormones and it can make it hard to manage your sugar. So I just assumed, hey, I'm diabetic, but I'm not pregnant, this is going to be steady and stable and easy, like, easier than gestational and I was wrong. Like, so wrong, yeah, but I, I, I just didn't know. I thought it was all my mistake. I didn't know all the variables. They didn't even explain honeymoon to me properly. Okay? They just told me, like, over time, your pancreas will produce less insulin. So I assumed it would be this nice, steady, consistent drop over time. And then I like, now looking back, I can see I was honeymooning, but I didn't re I'm counting my carbon better, and I'm like, looking at everything else thinking I made a mistake. Yeah, I didn't know. So that helped with our daughter, because then when she was honeymooning, I'm I try. I didn't try that hard and like, we just have to survive the honeymoon, and then we'll get our
Scott Benner 27:23
settings right with you. You were you didn't know where to fight the fight even I
Charlie 27:28
yeah, I thought it was my fault. Man, I'm doing awful. Like, I need to manage this.
Scott Benner 27:33
And in the end, am I correct to say it's getting your basal state right, learning how to Pre Bolus your meals, making sure you're counting your carbs well, making sure you're understanding the impacts of other foods, like fat and protein, not staring at high blood sugars, not over treating lows. That pretty much it,
Charlie 27:50
yeah, yeah, that's it. Also recognizing like, hey, you know, this might be the pancreas. And just don't even just survive. I wish I could go back and just survive my honeymoon and not try and perfect my honeymoon.
Scott Benner 28:02
You didn't get caught up in the like, why is this suddenly happening like this? You just said, Well, this is what's happening. We'll get through this day. Eventually this will stop happening. Yeah,
Charlie 28:10
with our daughter, yeah, yes. That's what I meant, yeah, yeah, yeah. Oh. It was like, Kurt managing her was so much, like, more laid back because I knew already I'm like, Ah, it's your pancreas. And what I did, speaking of schooling earlier, I gave myself everyone says, give yourself grace. I decided, because I had heard from many diabetes, it takes one to two years to really get the hang of it. I gave him, I've told myself four years, because that's like a university degree, or like a schooling degree, I take your point. In four years, I will either know why this happened or it won't even be happening anymore. So when something happened, yeah, I'm just like, Oh, I've got three years left to figure this
Scott Benner 28:56
out. But that's not what they call true, because a lot of people get to the end of the amount of time they set for themselves and still not be there. But you figured that that's not really what you did though you went and found the podcast and you learned quickly,
Charlie 29:08
yeah, I mean, I'm still our highs. No, no, of course, but already most of them are, yeah, I'm I gave myself four years to like, help my mental health, my sanity, my stress levels, but we're, I feel like we're already there.
Scott Benner 29:24
You got to hear four years and how long? Well, I'm
Charlie 29:27
one year in a bit. What am I? I'm 14 months into this.
Scott Benner 29:31
Yeah. Well, then to that person online. I'm not an asshole. See, no, I helped this lady and her kid. I
Charlie 29:38
like I sometimes think about where would I be right now without the podcast, how long would it have taken my team to get my basal right? Charlie,
Scott Benner 29:47
which province are you in? Ontario? Oh, I don't know what that means. I just wanted to say, well, this isn't one that starts you with mph. Is it? No,
Charlie 29:59
I was Star. Started on basal glare and Nova rapid. And she was started on basal glare and Humalog. But
Scott Benner 30:06
still, in all, did you turn your basal up back then? Or did they
Charlie 30:10
at times I was, I was making adjustments between appointments, but then they would also turn it up and down.
Scott Benner 30:17
Were you honeymooning in that, that situation? I
Charlie 30:20
think so, yeah, but then, like I said, I didn't know.
Scott Benner 30:23
You didn't understand the honeymoon. Well, I didn't understand the
Charlie 30:26
honeymoon so I couldn't even consider it. I didn't know that's what it could be.
Scott Benner 30:31
So by the time you get through your honeymoon period, you and they have moved your basal all over the place countless times, and you're like, you said, roller coastering up and down all the time. That could have been your launch. You know, once the honeymoon was over, your settings could have been so far whacked, like, I don't know where you would have ended up or how long it would have taken you to get back from it. Yeah, I hear so many stories of, you know, sometimes you get a great endo nurse practitioner, etc, and they help you get through it very quickly, and sometimes you don't, but such a crap shoot. Like, are you going to get lucky and get that doctor and then live a reasonable life the way you are now? Or are you going to get unlucky and just chase this dragon until you you know, to throw yourself off of an iceberg? Yeah,
Charlie 31:17
I think I got lucky with my endo now. I don't bounce around endos anymore. I have found a good one, and he is good. And I didn't know that until just a few weeks ago, when I had an appointment and I talked to him about loop I was on tandem tea slim, and I said, Look, I had started looking into loop more when Sydney was diagnosed, her team had suggested Omnipod for tubeless. And I was like, Yeah, but I, I know the value of an algorithm. I want that for her too. And her team had said that what they see in kids this age is algorithms just put them on roller coasters. And my first thought was, well, that's a settings problem, right? I just kind of agreed with them, because I, I wanted to fast track my pump for her or her pump. I knew they had to trust me in order to get that done. I was like, okay, yeah, we'll do Omnipod. And that's when I started looking into loop way more. So
Scott Benner 32:10
you smiled and waved them into giving you an Omnipod so you could put her on loop. Watch
Charlie 32:15
also my, well, my Endo, um, had even went into my loop settings. And he's like, No, you should do this. You should do that. And I said, Look, I'm surprised you touched my loop. Like, I've heard doctors don't do that. He's like, Nah, that's a misnomer. He's like, you're going to do great. Loop is great, and you're going to be teaching us stuff soon. And that's when I learned, okay, I have a great Endo, but her team. I don't know yet. I don't know.
Scott Benner 32:42
Don't worry. Give him a chance. Yeah,
Charlie 32:45
so her team was kind of against the algorithm. And I'm like, Yeah, that makes sense. Blah, blah, blah. And I kept doing my loop reading, yeah. And everything I was reading was saying with with kids on such little amounts of insulin that she was on her basal before pumping was half a unit of basal glitter, sometimes eyeballing a quarter unit. And on Omnipod, it was point 05 every other hour. So all my reading on these Facebook pages, your Facebook page was diluted. You need more basal for loop to work. I emailed her team and I said, like, Hey, I'm still doing my loop reading. I hear diluted will make it better. What do you think? And they called me and they said that there's actually a shortage on the diluent. Parents whose babies like nine month old babies need this, truly need it. Are buying it off the black market, and also it's off label to use diluted in a pump, so the doctor's not comfortable with it. And I said, Okay, yep, that's not an option. Then that's fine. But a month goes by and I'm like, I haven't seen any complaints about the shortage of diluent on all these Facebook pages. So I posted, I'm like, Hey, like, in my Canadian Facebook pages, the local ones, is there a shortage on diluent? And nobody said yes. Like, everybody's like, No, we all have our diluent. What
Scott Benner 34:17
do you think happened then? What do you think that answer really meant from them. They just didn't
Charlie 34:22
want to do it because it's off label. I even called Lily and asked, is there a shortage on your diluent? And they said, No, there's no shortage. And they told me how to get it from the pharmacy, and I got it so now she's looping with diluted, and her team doesn't know yet. And
Scott Benner 34:39
you took care of that all by yourself. I did. You're an awesome mom, aren't you? Well, it was your podcast. Well, yeah, I mean, I'm awesome, but if I keep saying that, people are gonna get annoyed with me. So you're an awesome mom. Take credit.
Charlie 34:52
Well, I was chatting with Adam from Adam song. He reached out on your page and said, Hey, feel free to message me. So I. Private messaging with him, and he was helping me convert her settings, and just helping me, like helping to set me up for success with putting her on diluted. Oh, that's awesome, too. It was awesome like he there's a few things that I would have figured out myself. They would have been speed bumps, but he helped. He just tweaked it, and they weren't even a problem.
Scott Benner 35:23
You know, I daydream sometimes about moving the Facebook group into a like, a private group. Like, there are third party companies that make, they basically make Facebook pages, but it's not in Facebook, and they have more options, like, and one of those options is like, people can set chats up and talk to each other right there and, and I so dream of like, like, not even like, most people set those up to charge people to be members of them. My dream is to just pay for it and let everybody just be in there for free. But I don't know how to get people to leave Facebook to go use this thing. And I get scared that it'll, like, split the group up, but I know it would be a better experience. It would be nice if Facebook would just add some of these features, but nevertheless, and then you wouldn't be stuck with their algorithm. Posts you see, you would just see them all, okay, yeah, which would be really wonderful, but I just, I can't figure out how to get that accomplished, and I don't know that it would work, yeah, but it's so cool that you found that person, and that you guys, you know, struck up a little bit of a of a friendship there and and took care of things, yeah? And we're
Charlie 36:31
still, like, I, I've touched base with him the network, man, it's, it's been incredible.
Scott Benner 36:36
It gets around the problem that you outlined and me, you basically just told a story about trying to get diluted insulin that I told about trying to get an Omnipod when Arden was four, right? Like somebody, you know, in a, you know, I'm making air quotes, but in a position of power, decided that that wasn't a thing they wanted me doing, and then they gave me a bunch of excuses about why it wouldn't work. Right now, you know, I don't know. 16 years later, Arden has been wearing an omnipot for 16 years. But back when Arden was four and I was looking for a pump, my wife and I were out looking for a pump. You know, omnipot was very new at that point, and they were like, you don't want that. They gave me a bunch of reasons why I didn't want it. And, you know, you basically just got the same thing. Oh, there's a shortage of that. Oh, it's not okay to using a pump. Oh, this. Oh, that. What they really mean is, we don't want to be involved in this. Like, so, yeah, why don't you just go home and struggle through this till this isn't a problem anymore? Yeah, and it sucks. It
Charlie 37:35
sucks. And I just wish, like, if they're that uncomfortable with it, sign a waiver. Like, have me sign something I recognize that my doctor advised against this, but I'm doing it anyways, yeah? And then watch me do it, right? But, yeah, that's not going to happen, but, but, like, if you're that on, I don't get especially when I'm hearing all these success stories of little kids looping on diluted Yeah, so it's not that dangerous. Listen,
Scott Benner 38:01
I've never used the little insulin. I wouldn't begin to know how to even accomplish it. I don't know that. I couldn't figure it out if I had to, but I have. I've never been involved in it, but I have seen 1000 people talking about how valuable it's been for them when their kids are very small and don't need a lot of insulin. Yeah, you know, again, I'm proud of you for figuring that all out, fighting through the system and getting it accomplished. Thank you. You're welcome. It's very cool.
Charlie 38:25
It was a lot to do this past year, I bet, but even back to the community, like, when I was building loop, I was messaging these people from around the world, they're helping me, and they're like, feel free to pm me. And then I'm messaging them like I because I was determined, like, I'm not going to waste the time of all these volunteers, I'm going to find the answers myself. The answers are here. They have all the websites, they have all the documents, but sometimes I just couldn't find the answer, yeah, but post and then they just immediately share. Yeah, I got answers right away. It was incredible. It was just like, it brought me to tears a couple times as I'm thinking about all these random people around the world who are helping, helping me. Yeah, it was amazing. That's
Scott Benner 39:08
awesome. And I'm proud to be perhaps, the, you know, the person that set the community up, that facilitated the conversation. So yeah,
Charlie 39:16
like for Yeah, you did, like it started with the juice box. For me, that's awesome.
Scott Benner 39:21
I'm so glad. Yeah, hey, you mentioned earlier that one of the reasons you didn't go to you guys call it University, like college, is because you couldn't think of something to go for. If I asked you now, what would you want to go for? Do you still not know?
Charlie 39:34
Oh, I don't know. I don't know. That's interesting.
Scott Benner 39:37
I didn't know if something had popped up in the years and you thought like, oh, you know what I would have been great at. You know this?
Charlie 39:43
No, I mean, maybe something with a hydro company, because they have great health benefits.
Scott Benner 39:48
That's all, oh, just something to get, something to pay for the diabetes. Currently, do you have a job? Or are you raising the kids? I'm raising the kids. Yeah, yep. Yeah, that's awesome. What's your husband do? He works for hydro. Oh, I see. And he's got good insurance through them. Yeah, the health coverage
Charlie 40:07
we have, I'm so, so thankful for it. I just can't imagine. What do they do? Is it water, oil, hydro, electricity, electricity, power line. Gotcha? Power Line? Technician, yeah.
Scott Benner 40:19
Oh, does he lay lines? Yep, hang lines. Oh, that's awesome. Yeah. Does he have stories about birds and other crazy things that, oh yeah,
Charlie 40:28
melted squirrels and, yeah, he'll take pictures. And he loves finding a melted squirrel, because then that's the problem. He goes, I guess. Oh, that's like, they don't have to troubleshoot anymore,
Scott Benner 40:40
yeah, just peel off. Show
Charlie 40:41
up like, oh, there's there it is. They don't have to, God, yeah,
Scott Benner 40:48
but, um, but a great podcast. All right, so now listen, we're three quarters of the way through your episode. Are you doing a good job? Are you going to be happy with this? I do not need you upset again now that you know how the links work.
Charlie 41:02
No, I feel, it feels, yeah, it's good, awesome.
Scott Benner 41:05
Yeah, that's really great. What just saw you make me laugh. I just imagine you like, you know, being like, where's that link? I forgot to say something. I'm gonna be I'm gonna have to put like, a No, I
Charlie 41:18
won't do it again. Maybe, if another kid gets diagnosed, then I will. I
Scott Benner 41:23
hope that doesn't happen me too, although I'm enjoying speaking with you, but not enough for one of your children to get diabetes so that I could do okay, yeah, how involved with all of this is your husband? Have you been passing information to him about your daughter's care?
Charlie 41:38
Oh, he's been amazing. It's been incredible. He just took it in stride. He learned really fast. I was careful to not overload him with information, because I was watching him learn how to look after our daughter and and I was seeing myself eight months prior. Yeah. So what happens usually is he comes home from work and then he's looking after her. He's counting the carbs, he's dosing her. He's in control. When he's at work, I look after her like, I think we've done a great job sharing. And there was times like I'd see him doing something and I think I'd do it differently, but I wouldn't say anything. I think he has to learn. Are
Scott Benner 42:20
you finding that his different is different wrong, or just different, different, but still works
Charlie 42:26
sometimes different wrong? Like, there was times I'd think like, that's not enough insulin, or that's too much insulin. So then I think he has to learn. Like, so what if he gives her a bit too much insulin? We'll have to give her some juice, and now he knows what it feels like to give a bit too much insulin or not enough. You
Scott Benner 42:44
have some have those experiences the way you do. That's
Charlie 42:46
the hot yeah, yeah. That was at the very start. I wouldn't say much. I kind of just let him do it, but then moving forward, once he had a better understanding, then I'd be like, hey, maybe we should try this. But do what you want, and
Scott Benner 43:00
it's awesome. I'm very open minded. My wife tells me, I do everything wrong, and then I sometimes say to her, you know, when you're not around, I live quite fine, yeah, like, I've made a number of decisions over the years that have gone well because anyone noticed? No, okay, but that's maybe a different generation who knows she's a lovely girl. That's the first thing I want to say. And if she hears this, I'm just kidding. You've never done that every day, Charlie, what? What are the impacts on the other kids? From you having type one and then from your daughter being diagnosed? Well,
Charlie 43:39
the baby, she's not even two yet, so she's doesn't know, but our oldest, I'd say, he felt the new diagnosis a bit because of all the extra attention. I'm sorry. The baby just came upstairs and she playing with a loud voice
Scott Benner 43:54
so the baby can get up the steps. She came
Charlie 43:57
upstairs with a loud toy, and I'm I'm walking away from her. Just push
Scott Benner 44:01
her down the steps. No, push her. Just push her. The Fall will stop her from coming back. She won't try it twice. I don't think. No, you're fine. What? What's the loud toy,
Charlie 44:09
the rolly thing? She's walking with this cookie rolly. Oh, I used to love that when I was a kid. Yeah, she loves it too, which is fine. Does
Scott Benner 44:17
it do the uneven wheels thing, where it kind of looks like it goes up and down a little bit.
Charlie 44:21
No, it's a different one, even wheels, but there's like, wood in it that clicks around. Yeah, that's lovely. Joey is our oldest. He was jealous of the diabetes, and he has said it a few times. He's like, I wish I had diabetes. So I got a prize because we got the NIA prize bin for her needles within the first week, and you
Scott Benner 44:42
should have stuck him with a couple of needles and said, hey, oh, this feel worth it, by the way. Wait just real quick for the people who think I'm an asshole. I'm just kidding. So you shouldn't just stab people with needles. But did you do something to try to offset that and help him?
Charlie 44:58
He got a lot. Up more one on one time, like we'd point out, like, hey, like, let's go outside and ride your bike. So he learned to ride a bike with no training wheels the two weeks after her diagnosis, because we spend that much time with him. One on one
Scott Benner 45:13
you saw that quickly and you reacted to it. You know it's, can I say something? Yeah, Charlie, maybe you found your job just fine. You know what? I mean? I know. Yeah, yeah. Like, everybody doesn't have to run off to college and do a thing to have a great life and be super valuable and complete inside.
Charlie 45:35
Yeah? Like, I'm happy. I just wish I could make a bit of money at home. That's all.
Scott Benner 45:38
Yeah. Well, you got to get those kids to pay you for what the work you're putting in, right? That's all, if you figure that out. I think you've got a winning combination right there. Yeah, yeah. If only can you send them out in the street to sell pencils or Panhandle or something like that? What if they held a sign that said, My mom works really hard and I don't pay her anything?
Charlie 45:57
That would work? No, yeah,
Scott Benner 46:01
the cardboard would freeze and get wet, probably, and then nobody be able to replace Ontario, right? Oh, yep, sounds
Charlie 46:08
cold. They just had a they had a snow day yesterday. Well, of
Scott Benner 46:11
course, what happened? Tell and Friday. Tell people how many feet of snow fell yesterday? Well,
Charlie 46:17
it was just freezing rain yesterday. Oh, but we got like two feet on Friday, so they had, I had all kids, all three kids, home four days in a row. God bless
Scott Benner 46:27
you. The snow. It's very upsetting to me when I hear about it. Yeah, I don't like it. My son enjoys, uh, downhill, snowy things. Every time I see him, he's having such a good time, like pictures, videos or whatever. But all I can think is, isn't it cold? And he tells me it's not. But he says it's not. He's like, once you get up there and you start doing it, he's like, you don't really, you don't get cold. And I'm like, I don't know. It seems like it would be really cold. I don't know. I probably just grew up with parents who didn't like to be in the snow, although it occurs to my wife and I recently, my wife enjoyed the snow. I did not. So when the kids were little, and she'd be like, take kids out, and it's not big, like, they didn't really grow up being out in snow. Okay, my son took to it really quickly.
Charlie 47:11
The kids don't get cold because they don't stop running and shoveling. Yeah,
Scott Benner 47:14
yeah, right, you're making a point. Maybe I should have went out. That's too late. Now. My life is best paid by now, I'm too old to go out in the cold. And by the way, if I'm being honest, now that I've lost weight, I do get cold faster. Really. I'm like, an old lady. I'm like, is it chilly in here? My
Charlie 47:31
husband's so glad when he, when he shaves his beard off, he's like, it's cold.
Scott Benner 47:34
I don't know. Yeah, no kidding, right? Sometimes I go outside, I'm like, my god, it's cold. Like, I bought a jet. I've never really owned a jacket as an adult, but I bought a jacket. I was like, I gotta have something to put on when I go outside. So anyway, these are just my problems, not yours. I don't want to take up your time. What have we not talked about that we need to
Charlie 47:54
I guess. Her diagnosis, I caught it early. Yeah, her hair fell out, was the first sign, Oh, her hair fell out. Um, looking back, her hair was falling out over two weeks. But in the moment, you don't think your three year old's leaving a hair No, sure. So initially it was like, you pull out a hair tie and it's like, Oh, I'm sorry, sweetie. Like, I must have pulled pretty hard, because a lot of hair came out. And then you brush your hair and it's like, oh, I guess I haven't brushed her hair in a while, because a lot of hair is coming out. And after two weeks, it's like, No, her hair is thinning. Now it wasn't clumping, it wasn't coming out in clumps, but it was thinning like to the point that she looked like an old lady, like it was really, really thin. So then my first thought was, she has diabetes, because hair loss is from can be from stress, and my sugars stress the body, and I just snuffed it. And I'm like, Nope, I because I had to trial that kit in the house. I hadn't. I had decided to test the kids, right? But I hadn't taken her yet for that antibody screening. It was on the kitchen counter. Like, Nope, it's not so
Scott Benner 48:58
you sniffed it out, but then you didn't want it to be so Is that correct? Yeah, okay, okay,
Charlie 49:03
I just in the back of my mind was this voice of, like, diabetes and like, no, it's so unlikely that she'll be diagnosed. But made a doctor's appointment for the hair loss, which took another week. They said it was probably from a fever a few months prior, that it's actually quite common for kids to lose hair after a fever. We've had many fevers, and we've never they've never lost any hair or vitamin deficiency, yeah, so she ordered blood work, and I did say I'm like, by the way, I have diabetes. What are the chances? And she asked about her water consumption. Like, yeah, she has been drinking a bit more, but it is warmer out. We've been outside more. Like, I could kind of justify the water at that point. So she's like, Oh, her own sugars, just in case. But then it took a week to get the blood work done, and by then, her water consumption had gone up a lot. And I just, I had to poke her. So I did. I couldn't go to sleep. I just got to test her blood. And I done it before. Four twice months before. For some other reason, I thought she had diabetes, and I'm like, I'll test her blood. She'll be in the fives, and I'll just go to sleep. I tested her and it said 21.9 and my first thought was, oh, I'm holding the meter upside down. That has to be 12. But, I mean, 12 still not still
Scott Benner 50:22
would have been still
Charlie 50:23
not okay, but like 21 so I flipped the meter upside down, and I'm like, that's not right either. Then I flipped it back upright, and I'm like, it's 21.9 and then it hitting me like, this is this? This is diabetes. I told my husband, I said, Look, I just tested her, and now I'm crying. I ugly cried. I've never cried that hard in my life. I had this little voice in the back of my head that was like, she's fine, she's going to be fine. You already know what to do, but I had all these emotions, yeah, sure, and all these posts that I told you, I just scrolled on by, not my problem, not my problem. All I could think was, now, this is my problem too, not just me, but a kid. So I cried and I let it out, and then when it was out, I checked her ketones, and they were okay. So then I decided, okay, we'll just take her tomorrow. Because I'm thinking, do I have to go to the hospital now? Like I'd I never went into DKA. I don't know. I don't have that experience, so, but I did have the ketone meter for myself, and her ketones were okay. So I thought, Okay, one more night, it is fine. Not that I slept. I stayed up till two in the morning searching Google for any other reason she could have high blood sugars, and obviously there was nothing. Yeah, and then yeah, the next day, took her to the doctor, and that's when we got the lab work. Her blood sugar in the lab was 32 and her agency was 9.9 Wow.
Scott Benner 52:00
Yeah, that's really well. It's well done figuring it out just from the hair thing, and then getting through the process pretty quickly. I think he did a good job figuring it out.
Charlie 52:11
Yeah, I think so too. But thank you. It's nice to hear it. No,
Scott Benner 52:14
of course, you took me back to standing in a hotel room in Georgia with my son playing while he was playing baseball, when I got the phone call from Kelly that Arden had thyroid issues, and I was, I was so upset that another thing happened, yeah, I think because my son was there, I didn't scream out loud, but I, I remember screaming in my Mind, yeah, yeah. So I found that very upsetting. Actually, I don't know why. I mean, as, I mean, the diabetes was incredibly upsetting, don't get me wrong, but like, the idea of like another thing felt unfair, and you know, then you realize it's unrealistic to feel like only one bad thing is going to happen to you in your life, nevertheless, like, I know what you're talking about. So, yeah, I appreciate you sharing that. Jeez. Way to bum us all out at the end, Charlie, I know, right? I don't know what to say now, yeah. I mean, yeah, you really, you ruined the whole thing. Let's go back to, how do the squirrels melt? Exactly? They just, like, are they like plastic, like, you know, like, or like, when a candle melts on it, like, when you, you know, when you burn a candle and it like drips on the tables, more like that, you peel it up in a big like
Charlie 53:24
that. It's pretty goopy, looking from the pictures, I've never seen one like he doesn't bring them home. Wow. But yeah, the pictures, there's like, goop and maybe some bones,
Scott Benner 53:37
goop and bones. Yeah, it's weird.
Charlie 53:39
Weird. Well, that's
Scott Benner 53:40
much more upbeat than the thing about the kid get kid getting diabetes, that's awesome. Thank you. I know, by the way, goopy bony squirrel not an upbeat thing for those of you who think that I I'm not kind to animals, by the way, for anybody who might think I'm not kind to animals, I'm looking behind me here, and there's a rain forest of like, reptiles living in this room that somehow started with me going, like, I'm gonna get a chameleon, and ending with me going, I have too many chameleons.
Charlie 54:08
I don't. Haven't followed the podcast enough to, like, know a lot about you, because all I've done is listen to the episodes that will help.
Scott Benner 54:16
Oh, you do the Yeah. Oh, you're a very management focused listener.
Charlie 54:20
Well, right now I've had to, like, when she was diagnosed, I thought I'm going to listen to this podcast start to finish, and I got two episodes in, and I'm like, I can't do this.
Scott Benner 54:32
I better go get the stuff I really need. No Not even that. Oh, not even Oh, tell me. Well, I
Charlie 54:36
needed a break from diabetes. I'm like, I'm already still learning very much, learning me and my new pump. Now I have this three year old. So now on my downtime, I'm going to listen about No, I am living it. I'm not going to listen to it anymore. I had to turn it off, had to take a break. I understand. I had to, like I had to go back to my. Crime podcast. Well, I did the dishes. No,
Scott Benner 55:03
I completely understand it. I also just got a note from old lady last night who said the same thing. She's like, it's too much diabetes for me. I can't and then, but eventually a lot of people cycle through that and then come back and do what you did and start listening later.
Charlie 55:20
I know I will in time, but I'm not gonna binge it like I binged the series to help me learn about diabetes. Yeah, so I know one day I will get through them all for sure, at
Scott Benner 55:33
your leisure. They're there for you when you need them, if you want them, yeah, yeah, absolutely. Well, I really appreciate this. I can't thank you enough for taking advantage of the system and coming back on and retelling my story. I'm so scared for all the people right now who are like, I didn't do a good job. I still, I still have that link somewhere. Oh, my goodness, I can't believe please email me first and ask so we can get it all worked out.
Charlie 55:55
Yeah, you're gonna change your system now, aren't you a one time use link or something? I
Scott Benner 55:59
mean, I've been thinking about it for about an hour now. Like, I wonder if the system, like, makes these, like, maybe I can make links that expire. That would be a good idea. Yeah,
Charlie 56:11
I'll book one. Now, before you do that, no,
Scott Benner 56:14
no, yeah, no, no, I pre it's such it's so funny. Like, when you said you were, like, a returning guest, and you're like, and I was on beaver tail, and then I went and I looked, I was like, that just came out. I'm like, I don't do things this way. I was like, Well, how is this possibly happening? But now you described, uh, you described it very fully. I understand what happened. So there's a flaw in the system, same flaw that lets those squirrels get through the electricity, I guess.
Unknown Speaker 56:40
Yeah, really.
Scott Benner 56:43
Well, you Canadians, you're just normal people like everybody else, right?
Charlie 56:47
Yeah. I mean, we apologize a lot. I believe we don't say sorry five times a day. We risk losing our citizenship.
Scott Benner 56:56
I love that you said sorry. Thank you for I know you don't know that you just said sorry. You think you said sorry, but I really appreciate that you did
Charlie 57:02
it. Oh, the like, with an accent. It's
Scott Benner 57:04
one of my favorite, like, Canadian words, accent situations like, sorry, sorry, yeah, it's my it's my favorite. It might be my favorite one. Actually, you guys do a couple of that are, like, about or a boot. Now the a boot thing that's too overdone, yeah? Everybody over here a boots all the time when they when they're making fun of you Canadians, yeah, I just the story to me, like, you've changed the word completely. I had no idea. And at the same time, the way it gets drawn out actually adds to the story. Like, like, like, you really are sorry. Not just like, Oh, I'm sorry. It's like, Well, I'm sorry,
Charlie 57:40
there's like, a sad tone to it. Yeah, yes, the
Scott Benner 57:44
way the words pronounced adds sadness to the tone. It's just very Canadian, in my opinion. And I, of course, know nothing about Canada, but I mean, if you're gonna listen to me about my opinion about Canadian, this is the most Canadian thing, except for beer and working in oil fields, apparently, which is a big thing there. Well, maple syrup, yeah. I mean, what an oddity, right? And why is it so expensive? I don't know, but I love it in my coffee, in your coffee, yeah. What the hell are you serious? How do you bowl us for that? At
Charlie 58:17
first, I didn't before I found the podcast. Have I talked about that enough? I would do an hour Pre Bolus on tandem or with MDI on MDI be like 30 minutes to an hour Pre Bolus. But with Luke, now, I don't need to wait that long,
Scott Benner 58:30
okay, because it hits it more and more as it rises.
Charlie 58:33
Well, I can type it in as a fast acting carb. Oh, I see. And it and then it. Loop has been awesome, amazing. Yeah, yeah. I went from like 85% in range on tandem with a lot of intervention on my part, to like 90s, mid 90s, time and range, and I changed nothing, and I still eat pizza.
Scott Benner 58:52
Wow, good for you.
Charlie 58:54
That's awesome. Yeah, I couldn't believe it. They
Scott Benner 58:56
had pizza in Canada.
Charlie 58:57
Yeah, you have pizza in Canada, but no maple syrup on it. Why? That's just in the coffee Canadian
Scott Benner 59:04
pizzas, most popular pizza in Canada, is typically made with tomato sauce, mushrooms and bacon. The dough is not made in a specific way. I don't believe that you have pizza. I'm not. I'm not joking. I genuinely don't. It's not like, a big, thick, like, no, it's thin crust, too interesting. You get deep pan. You can get the deep pan pizza. I don't want that. No, if I ever come, I'm gonna have pizza while I'm there, just to judge it. Dominoes. No, see, that's not pizza. You don't know. I knew. You didn't know about pizza dominoes. Dominoes is fast food. Ah,
Charlie 59:40
okay, then maybe we don't have pizza. You don't.
Scott Benner 59:42
There's no way you do. I don't know why, but it can't be possible. You can't. Oh, my God, are you ever going to travel
Charlie 59:50
here? Probably not in the near future. No, all right, I'm just
Scott Benner 59:54
saying, if you ever get to the East Coast, just, please, just anywhere, even on the street. You. You'll be like, Oh, this is so good, or you'll hate it. Who knows? Maybe you just maybe you've got a taste for the dominoes. I do have a taste for the dominoes. Do you ever order any of these other scary things that they have, like the cheese filled things, or the macaroni and cheese, or do you stick with the pizza? Mostly, not
Charlie 1:00:15
the No, not the mac and cheese, but their chicken bite, those are good. And then the cheese bread, the philly steak. Cheese bread,
Scott Benner 1:00:23
philly steak I get. I am from Philadelphia, and I guarantee that there's nothing about that that would mimic you having a cheese steak here in the city. Well, there is a Domino's perfect combo deal for $20 that has so much, and I'm going to use air quotes food in it. I can't understand how it's only $20 there's a pizza. There's lumpy things. Other lumpy there's a lot of stuff here, dipping sauces. I pick
Charlie 1:00:53
based off of what coupons they offer. Okay, they always have a mix and match coupon. So it's like 899, for all these items, and I picked from those.
Scott Benner 1:01:03
I just have to say, I want to say this out loud, if you are bolusing for dominoes and all the accouterments that come with dominoes with something I taught you, I'm a fucking genius, that's what I'm gonna say right now, because this stuff does not look good. No, we
Charlie 1:01:19
had, like, a few days into looping, we had Domino's Pizza, and I'm like, Alright, I'm prepared for a high. Because I'm like, I'm I'm gonna do the like, five minute Pre Bolus, and because with tandem, I had all my tricks to, like, not go high. And I'm like, I just gotta start somewhere with loop, I didn't go, I hit, ate something, and then came back down, and that was it. I couldn't believe. No,
Scott Benner 1:01:42
I'm a genius. I'm going to come right out and say it also, I want to tell you all that if you just go to YouTube and search for Stadler made pizza, you'll learn to make a dough there. Then I'd like to see you make your own sauce, throw a little bit of Montreal cheese on top of it, put it in an oven, bake it up. I really think Canadians, you would love this. I want to get you away from dominoes or pizza. Pizza, Little Caesars. Yeah, we do. That's there too,
Charlie 1:02:07
not in our town, though, we just do dominoes. Okay?
Scott Benner 1:02:10
Saddler made YouTube learn to make a pizza for yourself. I think you'd really enjoy it. Okay, I will look that up. I mean, you've got three kids, they would love making pizza. They
Charlie 1:02:22
would Oh, they do love making pizza, but we get the like the frozen No,
Scott Benner 1:02:26
no. Charlie promised me you. You tricked me and came on the podcast space, promise me you'll make pizza one day.
Charlie 1:02:32
I promise you. Oh, I will look well, yeah, I write this link down, then I got
Scott Benner 1:02:38
no Statler. SP, T, A, D, I'll find it for you. It's S T, A, D, L, E, R, pizza dough. Oddly enough, the guys from, I don't even know where, he's got quite an accent. He has great short videos about how to make pizza dough and how to, like, ferment it, and then, you know, it's a little bit of a process, and you're not gonna have a pizza oven, but I still think you can get away with doing it in your regular oven at a high temperature kind of quickly. I see this as being a nice family. I'll give it
Charlie 1:03:11
a shot. I will. I'm gonna do it. Yeah, thank you. We haven't had to keep the night in a while, so
Scott Benner 1:03:17
if I just do this real quickly, I think I can use the guys. The guys got such an interesting voice. Hold on one second.
Speaker 1 1:03:23
Slowly start to suck up all the voice and start to stick onto the table. In case this happens, I have one tip for you. Try to blow some air underneath. Okay,
Scott Benner 1:03:32
I don't know what accent that is, but some of the fish knows how to make pizza, so you don't know. Yeah, how would you know what an accent is. Yeah, we don't have accents, right? Just listen, if you don't make the pizza, call me up and just say, oh, you know, I'm sorry. And then that'll be the end
Charlie 1:03:48
of it. I'll make it, and I'll post my graph into Facebook. Thank
Scott Benner 1:03:52
you. Thank you. Last question, I'll let you go. Right. All right. What do you think it is about the Canadians and the apologizing?
Charlie 1:03:59
I have no idea, but I was sick of being teased for it when I worked for the circus.
Scott Benner 1:04:04
You're not joking though, right? Like you're you're apologetic by nature. I
Charlie 1:04:09
don't know where it came from. I think it's, it must just be a word. It just must be like, we don't always mean it. We just say it, kind of thing. Oh,
Scott Benner 1:04:18
you don't think you mean it when you say it. Not
Charlie 1:04:20
always sometimes, yeah, it's just, I don't know.
Scott Benner 1:04:24
My wife would tell you I haven't apologized since I met her, and she might be right, and I feel bad about that. I don't know. I just didn't know if you had any insight about it. You almost apologized while, while explaining why you might apologize. You were like, well, you know, I mean, it's just a thing we do and, you know, like, it gets like that all the sorry. I don't even know you were a split second away from going, I'm sorry, but I can't answer your question about sorry, so I don't know anyway. God bless you. And that was a weird thing to say. I have no religious holdings whatsoever, but I but I'm really happy for you and the success you're having. Manage. Your your child, yourself and how far you've come in such a quick amount of time. So, really, seriously, well, thank you. No, it's my pleasure. Hold on one second for me. Okay,
Charlie 1:05:08
okay.
Scott Benner 1:05:17
Arden has been getting her diabetes supplies from us Med, for three years, you can as well us med.com/juice, box, or call 888-721-1514, my thanks to us, med for sponsoring this episode and for being long time sponsors of the Juicebox Podcast. There are links in the show notes and links at Juicebox Podcast com to us Med and all the sponsors, a huge thanks to Omnipod, not just my longest sponsor, but my first one, omnipod.com/juice box. If you love the podcast and you love tubulin pumps, this link is for you. Omnipod.com/juice box, I can't thank you enough for listening. Please make sure you're subscribed, you're following in your audio app. I'll be back tomorrow with another episode of The Juicebox Podcast. If you or a loved one was just diagnosed with type one diabetes and you're looking for some fresh perspective, the bold beginning series from the Juicebox Podcast is a terrific place to start. That series is with myself and Jenny Smith. Jenny is a CD CES, a registered dietitian and a type one for over 35 years, and in the bowl beginning series, Jenny and I are going to answer the questions that most people have after a type one diabetes diagnosis. The series begins at episode 698, in your podcast player. Or you can go to Juicebox podcast.com and click on bold beginnings in the menu. Hey, what's up? Everybody? If you've noticed that the podcast sounds better and you're thinking like, how does that happen? What you're hearing is Rob at wrong way recording doing his magic to these files. So if you want him to do his magic to you wrong way recording.com, you got a podcast. You want somebody to edit it? You want rob you?
Please support the sponsors
The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!