#1414 Great Flood

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Erin’s 10-year-old daughter, Kylee, was diagnosed with type 1 diabetes two years ago. Erin and her husband struggled with the diagnosis, asking, "Why us?"

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Scott Benner 0:00
Welcome back, friends. You are listening to the Juicebox Podcast.

Karen's daughter was diagnosed two years ago. Her and her husband struggled at first with the diagnosis, asking why them? Nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan. Don't forget, if you're a US resident who has type one, or is the caregiver of someone with type one, visit T, 1d exchange.org/juice box right now and complete that survey. It will take you 10 minutes to complete the survey, and that effort alone will help to move type one diabetes research forward. It will cost you nothing to help. Don't forget to save 40% off of your entire order at cozy earth.com. All you have to do is use the offer code Juicebox at checkout. That's Juicebox at checkout to save 40% at cozy earth.com I know that Facebook has a bad reputation, but please give the private Facebook group for the Juicebox Podcast, a healthy once over Juicebox Podcast, type one diabetes. The group now has 47,000 members in it. It gets 150 new members a day. It is completely free, and at the very least, you can watch other people talk about diabetes. Did you know that, despite the increase in CGM use, only a third of people living with diabetes meet the recommended guidelines for healthy glycemic levels. Today's episode is sponsored by Medtronic diabetes. Learn more about hyperglycemia at Medtronic diabetes.com/hyper today's podcast is sponsored by us med us, med.com/juicebox you can get your diabetes supplies from the same place that we do. And I'm talking about Dexcom, libre, Omnipod, tandem and so much more us, med.com/juice box, or call, 888-721-1514,

Erin 2:11
well, my name is Erin, and I'm talking to you today because my daughter Kylie was diagnosed with diabetes type one, almost Exactly two years ago. How old is

Scott Benner 2:22
she now? She is 10, and she was diagnosed at eight.

Erin 2:27
So she was diagnosed actually two weeks after her ninth birthday.

Scott Benner 2:30
I see okay, and you are American, yes, you said the diabetes part. Like, do you ever do you know people who say the date backwards? Oh,

Erin 2:45
you did, yes. That's funny. I didn't even think about that you

Scott Benner 2:48
said. You said it like you were charting it. Does that make sense?

Erin 2:53
Probably, maybe my mind, I do kind of that chronological order, where I date things. It's really

Scott Benner 2:57
interesting. Yeah, diabetes type one. I was like, oh yes, this is, this is like a scene from Grey's Anatomy. This is very exciting. Okay, well, I

Erin 3:05
work in a dental field, so in my mind, that's kind of how I guess I classify things as well,

Scott Benner 3:10
very nice. Felt like I heard that that's all any other type one in the family, or other autoimmune stuff.

Erin 3:18
No. So she was a surprise to us. We had no we were blindsided. None of our family, okay, we asked all the family, and nobody in the media. We had a couple, maybe type twos, and like the great, my great, great grandparents, but nobody in the near family. My mother in law is adopted, and she does not know anything about her background, so there's a possibility there. But other than that, we we were completely blindsided.

Scott Benner 3:47
Got you I understand, okay, in hindsight. Now, when you look at your own health, do you see other autoimmune types of stuff like celiac or Hashimotos or stuff like that? No, no. Okay. How many other kids or no one could I

Erin 4:01
do? I have two. I have one other, and he's boy, and he's gonna be 13, and at the beginning of next year. So

Scott Benner 4:09
are you in like, like, your late 30s? I am. That was that upsetting to you. I don't

Erin 4:17
know if I'm ready for it. I just turned 39 and I'm like, okay, hitting those 40s.

Scott Benner 4:23
Just loved your response. You're like, I am. Yes, I How did you know I look so young in person,

Erin 4:30
right? Exactly? I was like, dang it, he guessed, you know.

Scott Benner 4:33
So we have a bit of a short window for you today, so I'm gonna do a little thing where I just kind of jump forward a little bit and ask you what it is that you were interested in coming on the podcast to talk about well, so

Erin 4:46
the reason why I kind of reached out to you was Kylie had it very interesting, and she had a lot of things happen to her very quickly, on top of her diabetes diagnosis. And I kind of want. To talk to you and in hindsight, now, after it being two years, I hope that what I can tell people gives them a little ray of hope in all aspects, because we did. We were in a huge slump for a while, our life got turned upside down. So having no idea that type one was even a possibility. My daughter all of a sudden, you know, she's playing softball. She's very, very active. All of a sudden, she is tired. She's exhausted. She's, you know, we are on her about, you know, why can't you focus? Why can't you do all these things that she normally, you know, would do? Because we were clueless, and we ended up having a flood in our house, which we have no idea how, why or what, but it took out her bedroom, it took out her bathroom, it took out the hallway, and that's how we found out we had no idea about any of the other symptoms. They weren't a thought process whatsoever. And she started going to the bathroom every 20 minutes after they, you know, pulled all the plumbing, pulled everything from our bathroom, and she was coming into our master bedroom, and every 20 minutes, I told my husband, I said, That's so strange. He said, You know, maybe she has a UTI. Maybe she has something, again, type one diabetes was not on our radar. So we finally got her a doctor's appointment. And the day of the doctor's appointment, we had to drive 45 minutes to get there. And the doctor is a good personal friend, and she took her blood sugar, and she's like, She's diabetic. We're like, I just cried because I was like, how? Like, How is this even possible, right? So in our area, we had two choices. She was like, you can either stay here in this town and go to the hospital here and they will fly you to one of the bigger cities. So I live in northern New Mexico. So my choice is either Denver or you drive back home 45 minutes, and then they're gonna fly you from your hospital to Albuquerque. So you need to decide, you know, where do you want to have her end appointments for the rest of her life, at least until she's 18? There was so much information. I was like, I'm doing what? Yeah. So we

Scott Benner 7:12
decided, am I flying to Denver Exactly? Yeah,

Erin 7:15
exactly. That's an eight hour drive for us. And I'm like, Oh, I don't you know that commitment is a big commitment. Albuquerque is three and a half hours. That's still a big commitment. We don't travel to Albuquerque very

Scott Benner 7:27
often. You don't at that point even understand, I would imagine, like, why is it i? Why can't you help me? Like, why am I going somewhere else? Right? This episode is sponsored by Medtronic diabetes, a company that's addressing hyperglycemia head on, Learn more at Medtronic diabetes.com/hyper and now we're going to hear from Medtronic champion Maddie. Hi.

Speaker 1 7:48
My name is Maddie Fisher. I was 12 years old when I was diagnosed. It was really, really hard through my adolescent stage. I hated diabetes. Sometimes I would cry and just say, like, Why me? And I think you know, just from hearing from people in the community that a lot of people have that very similar story. What did you find that helped? I was able to see all the latest technology that other type one diabetes, especially in the Medtronic champion community, were using, and I stumbled across the N pen. And this girl was using the N pen, I just messaged her tell me all about this. I called Medtronic, and the lady that I was talking to, she's like, Yeah, I totally understand.

Scott Benner 8:29
It feels like meeting more people helped you. Yeah,

Speaker 1 8:32
I definitely did. You know, I used to hide everything, and now I wear it with pride. What

Scott Benner 8:38
have you learned since you've been wearing your technology openly, there's great

Speaker 1 8:42
support. And then, you know, you have Medtronic who just elevates that support.

Scott Benner 8:47
Prolonged hyperglycemia can lead to serious health problems and long term complications. Learn more about hyperglycemia at Medtronic diabetes.com/hyper

Erin 8:58
Yeah. She was like, just, you know, there is absolutely no pediatric endocrinologist in this area. I was like, what like, how do we not have that hair? So we drove the 45 minutes back home, and my daughter's in the back seat just falling asleep, like she couldn't even keep her eyes open. Her blood sugar when we were at the doctors was 500 and so they sent us back. And by the time we got to our local hospital, you know, they had to go through all the protocol again, even though it just had a doctor called ahead, right? And they were like, it's not reading on our you know, machine. We need to do blood work. So we sat in the hospital for almost four hours with little to no information. Our hospital is a small, rural hospital, and next thing we know, they're like, we're we're sending you to Albuquerque. And we're like, okay? And they're like, well, she's in DK, so we need to send you guys like, now. So can

Scott Benner 9:55
I ask a question? Had you sat there long enough that you could have driven to Albuquerque? I. Yes, yeah, okay, oh

Erin 10:01
yeah. My husband was able to, as I sat in the hospital, he was able to come home from work, change his clothes, come to the hospital and hang out for another hour. And he he works about 45 minutes out. So we were very frustrated. We were like, you guys have any information? The nurse literally came in and was like, did the doctor tell you she's in? DK, we're like, no. Nobody's told us anything. They took her blood, they left. We really haven't got anything. So she was air flighted out, and we went to that hospital, and they were on it. Long story short, we were there for three days. We got a lot of information, and then, you know, sent home, and we've been working on it. Our endo has been very happy with everything that we've been doing her first appointment. So when she was diagnosed, she was at four teen point something on her a 1c is what they were averaging at the hospital. And then when we came back for her like, three month checkup, she was at 6.4

Scott Benner 11:00
when you look back, how long do you think this was going on for? Honestly,

Erin 11:03
to think about it this time frame, plus two years ago, just so we had, yeah, a family vacation around Fourth of July. She had an all star softball game that she was playing like this weekend two years ago. So we think it was at least probably four months by what they're estimating, the ANC, and just looking back at all the symptoms that she

Scott Benner 11:27
had first, that you saw along the way, when you can look back at it again, yes, and one of the

Erin 11:31
ones that I see and I process now that I really wonder about is she had a lot of abdominal pain months, Months before we noticed, you know, the thirst, the urination, all of that, I would guess, she would come in every night and be like, my stomach just hurts, and we're like, Well, do you need to use the restroom? You know, maybe you're eating things that are, you know, upsetting your stomach. And she would just be in knots. And then it would go away. And couple days later, same thing, and then it finally, it went away, and we didn't think much of it.

Scott Benner 12:04
Interesting. I wonder. I'm gonna think about that and do a little research while you're talking on the on the stomach pain idea, because people bring it up all the time, I never really dig into it. So, okay, so what is the impact on her? How does she respond to this? Oh, I mean,

Erin 12:20
she has been a trooper. She does so we're MDI. She's continued to be MDI. She does not want to pump. She does use a CGM. We did switch over to the g7 which she does really like due to the size of it. My daughter's only 72 pounds. She's very thin, very muscular. It slows her down. And when it slows her down, that's when she's like, I wish I didn't have diabetes. Oh,

Scott Benner 12:45
I see, yeah, does she talk about it? A lot.

Erin 12:49
She does, and she we've been very blessed. She is willing to talk to other people about it. We have to, you know, we want everybody to know, so that if we can't watch her or see her, hopefully something ever happened to her, they would be aware. She has some great friends at school that have known from the beginning, you know, and they're like, let's go to the nurse. You just are acting funny or, you know, yeah, they're very receptive. But she, she's really good about letting people know, and not being afraid to tell people about it, you know. And she's like, Yeah, I have diabetes. I

Scott Benner 13:25
wasn't sure when you first said. I thought when you said she was good at talking, she was open to talking to people about it. I thought you meant therapy, but you just meant, oh, friends in her life and stuff like that.

Erin 13:35
Yeah. Okay, yeah. Thankfully, as of right now, I don't see any mental like frustration or load or anything that would need therapy again, she's 10, maybe when those hormones kick in and all that, she might need some help, but no just speaking to people in general, or people asking her questions, you know, she does her injections in public, will look at her, you know. And if people ask, you know, she's like, I have diabetes, so she's, she's very vocal about it. Okay,

Scott Benner 14:05
do you How are you guys handling it? You're the rest of your family, your your other child, your husband, yourself.

Erin 14:11
My husband, curses every day about it. Wants to know why, why? Why her. I think I spent the first three months of this diagnosis, just in tears every night, you know, just streaming tears down my face, trying to figure out, like, why? How my son, he's done very well, but he definitely has told people, you know, my my sister is my parents favorite. And they're like, Well, why do you say that? You know, my mother in law quartered me one day, and she's like, just, you know, your son? Know, your son asked me why Kylie's your favorite? And she's like, and I told him, it's not that, you know she's their favorite. She just takes so much of their time. Some days it's really hard for him, but he takes it really well, and he's been, honestly, very awesome. And. The fact that he's picking up and learning and he's helping us when, you know, we have to go to work, and I need somebody with her for a short period of time.

Scott Benner 15:07
So it's interesting, is that that that would feel like favoritism when to your daughter, it feels like unwanted attention? Probably, I don't want to be doing this, you know? Yeah, and by the way, if something else, it would just be something else. In case you're wondering, you weren't going to get through parenting without the kid being upset about something. So you're fine. This is what it is. Yeah, I do think that no matter how well it seems, that everyone else is adjusting, and I'm sure everyone will adjust, but there's still impacts. Like, you can't just say, oh, there's no impacts. Oh, my son's 24 now, and he'll talk about, like, you know, you'd be on your way to do something. And then all of a sudden everything stopped. And then we stood there for 20 minutes, like, making sure Arden was Okay before we did something, or that kind of thing. And that obviously stuck with him, because he's older now, and he still remembers

Erin 15:59
it, you know, yeah, we do a lot of you know, my husband will tell my son today me and you are going to go out on the boat and go fishy like your mom has, Kylie me, and you're going to go spend time, and we're having to make a conscious effort to make sure that we spend time, which is horrible. It sounds horrible that you have to make a conscious effort just to spend time with one child, but we want him to know, especially now that he's mentioned it. It's not that, you know she's our favorite we tell her she's our favorite daughter, but you know he's our favorite son. That's just how it is.

Scott Benner 16:33
Well, you know what? If it wasn't this, it would have been softball or something else. You're always at softball, but you know, you would have just, trust me, does he play a sport. So he

Erin 16:41
has, he does. He's played baseball since he was little, but he's getting to that teen, teenage year where he's picking and choosing. So he plays soccer as well. So he does a little bit of everything, and then he loves to bass fish. So we try to get him out there doing that as well. Don't

Scott Benner 16:56
you live in a desert? Where is he bass fishing?

Erin 16:59
So I do live at a desert. We live in the high desert, technically. So we actually have a really nice, very large lake 45

Scott Benner 17:06
minutes from us. Oh, it's lovely. Yeah, I love that. The Great Flood is how you were able to figure out she had diabetes, just because it diverted her to another bathroom. That was all right, yeah, that is it. You were 100% correct. A kid was peeing a ton before, but you didn't. Hey, is there a chance she she flooded the she flooded the bathroom. Was that pea or water you saw going through the house? Oh,

Erin 17:26
oh, yeah. So we had the great flood, and then we had the tortilla incident, where she bit a tortilla and took one bite out of us. We had this little, teeny, tiny bite mark in it, and then the rest of it was floating in the toilet, in my toilet. And I was like, Kylie, did you eat a tortilla in the middle of the night? And she was like, No, we're like, What do you mean? No, we're like, this soggy piece of evidence that I have to, like, fish out of my toilet.

Scott Benner 17:50
She was that hungry during the middle of the night that she

Erin 17:53
Yes, and she didn't remember that she ate it. So she was coming to our room to go to the restroom. On top of it, she was stopping to get food, and then not remembering the food. And then I was like, I need to get her a doctor's appointment really fast. I don't understand this.

Scott Benner 18:07
She's sleep walking tortillas before we move on, Aaron, stomach pain prior to type one diagnosis can be due to several factors. This, of course, is from chat, G, P, T, 4.0 D, K is the serious complication of unrelated diabetes, but blah, blah, I don't think it was that in the because it happened so far. In the beginning, gastroparesis, probably not that I would think that she didn't have nerve damage from it, but high blood sugars, elevated glucose levels, can affect the digestive system, leading to abdominal pain and discomfort. And then the other eye possibilities for pancreatitis and an infection, but I bet you it's just the high blood sugars creating that problem. Yeah, that was kind of our thought process on that. Yeah, let me ask you another question about the time spent kind of crying and wondering why that happened to you, and you know, that kind of to your daughter, etc, you're never going to come to an answer. So is that a thing you give away at some point, or do you still mull it over? I have always disliked ordering diabetes supplies. I'm guessing you have as well. It hasn't been a problem for us for the last few years, though, because we began using us Med, you can too us med.com/juice, box, or call 888-721-1514, to get your free benefits check us med has served over 1 million people living with diabetes since 1996 they carry everything you need, from CGM to insulin pumps and diabetes testing supplies and more. I'm talking about all the good ones, all your favorites, libre three, Dexcom, g7 and pumps like Omnipod five, Omnipod dash tandem and most recently, the eyelet pump from beta bionics, the stuff you're looking for, they have it at us. Med, 88887211514, or go to us. Med.com/juicebox, to get started now use my link to support the podcast. That's us, med.com/juice, box, or call 88872115140,

Erin 20:09
we definitely still mull it over. My, my husband's family is very Southern Baptist, and we, you know, we sit there and we say, you know that there's a plan. There's a plan. We don't know the plan, and we try to not mull over too much about it, but it's very hard. It is very hard, as a human, to just accept it. Just accept it, yeah, and knowing that this is going to affect her the rest of her life. You know, the future that I saw for her is not the future that I see for her now, you know, and that's frustrating,

Scott Benner 20:43
yeah, no, of course, we talked about this recently. First of all, I think, I think Baptist Jesus's plan is just for you to spend a lot of money on CGM and pumps and things like that. Over the years, they're like, you know, what'll keep them working? What if they had more bills get them going? But quite seriously, like we were talking recently, gosh, about this idea of a normal life. Like, because we talk so much about you can live a normal life with diabetes, which I fully believe, right? And I watch my daughter do it, but no one's living a normal life. Like, do you mean like, like, what would normal be exactly? Because I think when people say normal, they mean unencumbered, true. You know what I mean? Like, I get to go do the thing I want to do, and that happens without me being sad or upset or inconvenienced or anything else that I just wanted to live a normal life. I think that's how a lot of people think about that phrase. And you know, I'm not going to say obviously, like, Oh, if it wasn't diabetes, it would be something else, because you get diabetes and something else. So then I love the positivity of you can live a normal life with diabetes, because I do believe that. But you also can't argue the fact that it's not normal. You know what I mean, like, it's, it's modified normal, new normal. Call whatever you want, right? But so I think you can live unencumbered with diabetes, you know, if you understand some things, and you have some luck, and, you know, decent insurance and, like, etc, like, all the things that you would need to accomplish that. But I would never disagree with anybody who said, like, this isn't normal, or this isn't what I expected, and I'm upset by it, the next step, 100%

Erin 22:26
not what we expected, not what we wanted for her. We didn't want her to have that extra junk to deal with, right? Our thought is, as a female, my thought is, she better find a partner that's willing to step up, because it takes a lot, and I hope, you hope that somebody will do that for her. You know, when she gets to that stage in her life, you know, as for everything else, we want her to live very normally. We we keep everything very normally she is in all the sports that she was before. We've had to get extra help past our Endo, and we've listened to your podcast. I mean, every ounce of information that we could absorb to allow her to have everything as normal and as pre diabetes, diabetes, you know, yeah, everything as before pre flood. We'll call it kind of that extra little Yeah, pre flood, we have, you know, everything that is done prior to and we just tried to tell her, we tell her, you know, you have to just take care of BDS first. Always be these first, but the rest of the time, be normal. Yeah. We want her to be normal and enjoy her life like a normal 10 year old kid. And

Scott Benner 23:36
I think what that means is Don't wallow. Maybe, and wallow is a bad word because it makes it sound like you're doing it on purpose. But I don't mean it like that. I mean, don't stay in this part, which is really the Listen, it's a matter if you break up with your boyfriend when you're, you know, 16, or you lose a job when you're 35 or whatever, like life's gonna go poorly. A number of times, you can't stay in that spot, right? You have to keep moving forward. There are all these platitudes you could use to, like, make this idea, but you just can't stay here in this and just keep re adjudicating. This isn't fair. You know, also, I did enjoy your point about a partner. I don't even you said as a girl, and I wondered what you meant by that. But because, I kind of think, because I kind of think no matter what, but I also don't have the experience of having to date 17 boys before I find a decent one. But I think there are women like that too, like, I think you we mean like, find an emotionally mature, reasonable person who's giving of themselves and willing to shoulder another person's burden. Is that what you mean? Yeah,

Erin 24:45
and so I mean by as a girl is, for me, as as a woman, the world is very it may be I have a lot of rights and things like that, but I still, you know, I still need a husband or a partner that. Is stable that, you know, Will and can take care of me, because there's a lot of things that I can't do, you know, I think about if and when my husband becomes that age. He's much larger than me, so I'm going to struggle to help take care of him. So I need to find, I want her to find somebody that is able, body, mentally stable. You know that can physically and emotionally take care of her? Yeah? Because we won't always be here to do that for her. That's

Scott Benner 25:28
the That's what I was trying to get to. That's the feeling you're having, that I have to live forever now, feeling Yes, yep, yeah, she was

Erin 25:35
she we're not allowed to die before she is, because we will be taking care of her forever. We've already told her we'll just blow out the other side of the house and refurnish it for her and her husband, and they can live with us the rest of their life. Yes, that'd be lovely. We'll be taking your hair. We'll take care of her.

Scott Benner 25:51
Don't flush the toilet too much, though, because the plumbing is not great. Hey, the plumbing is good now it is. Yeah, sure, yeah, you're plumbing, and you're and your $15,000 home equity loan, I imagine that you have now it's nice to think about also, I think honest of you and and kind of you to say out loud, because I can hear in your voice, as you're talking, you don't want to say to people, I need help, because I'm a Woman like that's not your intention, but size is an issue at some points, and could be with help once people, I'm literally watching a family member go through this right now, where older people, you know, the husband deteriorated before the wife, and she just, she really can't manage what needs to be managed, and this

Erin 26:37
is something that she's going to have The rest of her life. And, you know, I It worries me. I want her to have somebody that will be able to take care of her, because I know I won't be able to, yeah, and I think that's all that I really am getting at. But

Scott Benner 26:51
yeah, I just can I take a slight, not a complete left turn, but just a slight left turn, because I'm interested in public. Do you feel more comfortable when your husband's with you? Yes, you do for personal safety reasons. Yes, okay. But do you consider yourself like a worrisome person? Like, oh my god, something bad is going to happen? Or no, it just feels like common sense.

Erin 27:13
I was not a worrisome person until my children all I want

Scott Benner 27:18
to do is protect it. Aaron, you broke up a little bit. You weren't a worrisome person before. Worrisome person before your children were born. Is

Erin 27:24
that what you said? Yes, okay. Um, not worrisome. And then when they were born, I just became a nervous wreck. And that's one of the things with Kylie's diabetes that I know that I just I worry about everything with

Scott Benner 27:37
her. Okay? Is that the mom thing that kicks in? Do you think, like, I gotta, I gotta keep everybody alive now, like, I hadn't never thought about that before they babies came flying out,

Erin 27:47
right? Yes, I think that's definitely that mom instinct kicking in, that, you know, I just this world is crazy, and I just, I want my children to be safe. And with that, that just comes in that anxiety and things like that. I know that if, if my husband's there, at least there's two set of eyes on, you know, our children, and it's not just me. And

Scott Benner 28:09
that feeling grew once the diabetes came, oh yes, to kind of incorporate that idea of, what if she gets low and we're not here, what if she can't afford something and we're not hear that kind of stuff. Yes, yeah. I think we all have that feeling, by the way.

Erin 28:25
Seriously, I looked at all of our stuff, and I, you know, I thankfully had some life insurance that I purchased for her when she was, like, two years old, yeah. And they told me they're like, do not ever let us not know that your bank account has changed. You know, like, the account numbers have changed because you don't want this to lapse, because now she can't ever get life insurance because she's diabetic,

Scott Benner 28:47
and that's something, yeah, I remember, listen, you know, I'm not planning the great takeover or anything like that, but we were saved. We're saving money as we're getting older, right? And when we spoke to somebody about how to manage it, they were like, well, what are your goals for the money? And we were like, We would like to leave it to our kids. And they were like, Yeah, but for you, and we're like, No, our daughter has type one diabetes, like, so we would like her to, I don't want to. I'll be dead. So I guess it wouldn't matter, but it would matter to her, and it would still matter to me, if I could see myself in that scenario. I don't want her to be 40 or 50 years old and like, ever have a moment where she's like, I can't afford insulin I can't get an insulin pump? I can't whatever things technology is going to look like down the road, and then the pressure of, if I leave her money, how do I not back to your original point about your son, like, how do I not leave an equal amount to my son? Like, is the last thing I want him to think after I'm gone is that he cared about her more than me. You know what

Erin 29:44
I mean? These things are always a thought in the back of your mind, and you're just like, oh my gosh, yeah, it's it's hard being a parent is what's best for them, and it's so hard.

Scott Benner 29:55
Aaron, without this diabetes, you could have ignored all these big life questions forever. You. Know,

Erin 30:00
and I could always just joke be like, Yeah, I don't like either of you guys.

Scott Benner 30:03
You guys suck. And, you know what, if you don't like the way that sounds, just, you know, get a good job, because you're gonna need therapy, and I'm not paying for it. And, like, and you could have just joked your way through it like everybody else does, and, you know, but instead, now it's like a real omni present, honest to God, issue in front of you. Yeah,

Erin 30:21
fun times. I wanted to tell you one other, it's been a little dark and gray for us for the last two years, and we feel like we're finally coming out. So I just wanted to tell you so, along with the diabetes, so she was diagnosed in October, then July of last year, she ended up having a appendicitis that was undiagnosed. Oh, so the abdominal pain, all of those issues were, you know, in hindsight, we're like, man, what is going on? But she ended up having an undiagnosed appendicitis. They couldn't figure it out. One of the surgeons came up to me, and they're like, I'm sorry. I let her diabetes mask a lot of these symptoms. Her appendix ruptured and she had to have emergency surgery. So she has a scar from the top of her belly button to the top of her pubic bone because they had to go get it. It was under her tailbone. Oh, my

Scott Benner 31:08
God, that's terrible luck for the kid. Yes, she's had

Unknown Speaker 31:13
really luck. Yeah, no

Erin 31:14
kidding. Jesus Christ. That's not even a lie. She has had these she has left in the last two years. So

Scott Benner 31:21
what do you think she if she could give one of those two things away? Do you think she'd say the diabetes or the scar in her belly?

Erin 31:26
I'm pretty sure she would rather get rid of the diabetes.

Scott Benner 31:29
Yeah, okay, let's just wonder. So wait, was this like an emergent thing? Were you like, Oh, she gonna die because you live near nothing? Yeah.

Erin 31:36
So we went in and we assumed, you know, hey, maybe this is appendicitis. You know, she was having pain, but once she starts growing up, we're like, Okay, this is our first diabetes protocol where we don't really know what we're doing. So we went and started getting fluids, and they're like, Uh huh. Just looks like she's having some inflamed lymph nodes. They sent us home. A couple hours later, she brought us right back to the hospital, and then they're like, Well, her, you know, blood sugar is off and she's having symptoms, but, you know, we think it's more of the diabetes. So they kept us for three days. They got her ketones back in order. We got her blood sugar back in order. She was still in pain, but they sent us home again. They said that, you know, those lymph nodes were inflamed. They called it like mesenteric adenitis, or something like that.

Scott Benner 32:25
And, and then we came back and they not spell. We can't figure this out. Is that what happened? Yeah, no, yeah. There was

Erin 32:31
no, you know, we don't know. Attitude. They were like, Yeah, you'll be fine. She'll grow into it. We're like, what she'll

Scott Benner 32:37
grow into, which she'll grow into the abdominal pain. It's

Erin 32:41
something that could be, you know, something she'll have until she's an adult. We're like, why? Boy, I'll tell you.

Scott Benner 32:46
Until I had a wife and then a daughter, I had no idea how quickly when people don't know what to say, when it's about a woman, they just go, that's a lady thing. You'll grow out of that, you know, once you I see, once you have a baby, a lot of that stops happening. Is that your medical opinion? Thank you. People are I'm not this person, like, but I do see this boy. It's easy to just say, oh, that's because you're a girl. You got girl parts, and then they just don't help after that. Like, PCOS is an example. Like, this is a real, serious problem, and the answer to it is bad luck on your part, I guess, yeah,

Erin 33:21
well, and I still feel that's how it is with the diabetes. It's like, nobody has a clue. I feel like I'm explaining the definition of type one diabetes to everybody that asks or come across, you know, yeah, comes across her. They'll ask me, how's your daughter? And they're like, does she has type one or type two? Again, tell me again. And I'm like,

Scott Benner 33:37
type one. And we said, we talked about, yeah, also to connect the two things together. It doesn't matter what your a 1c is. It doesn't matter if it's six or five or eight or nine. If you look like you're trying, a physician goes, You're doing great. You're doing great. So you tell a person with an eight and a half a 1c You're doing great. And for 20 years, they're like, I'm doing great, you know. And then they start having problems. They go, I don't understand. Doctor told me I was doing great my whole life. Oh, yeah, great for, you know, you or, you know, for the amount of effort I thought you could put into it, or the understanding I thought you had. But no one ever says, hey, it's an eight and a half. I love your effort here. You're doing great. But I bet you if we made a couple of tweaks here and there, maybe brought in a couple more ideas. What if we made this a seven, and then once we get the seven, what if we look into getting into the sixes and really try to eliminate the idea of long term complications for you? But no, just You're doing great. That's the end of it. By the way, plenty of doctors who do that stuff, but way too many who don't, is what I'm saying, yeah, yeah,

Erin 34:41
yeah. So she, like, I said, you know, undiagnosed. So she went and had her surgery, and that put her out for a while, you know, because it was major abdominal surgery, yeah. So at that point, she was like, everything in anything in my life has been bad for the last two years. And she's like, I. Want to do any sports. It's softball. Softball caused diabetes. Softball caused my appendicitis. I don't want to play softball anymore. I just and she kind of gave up for a minute, like she was like, over it. She was over everything. Because when we got back from all of that, after trying, you know, all those months, and we were doing really good, and then she had the appendicitis and surgery and then having to refigure out how to get her blood sugars under control again. She was just like, I just, I don't want to. And we're like, you don't want to. She's like, No. We're like, but you like, this girl can't sit still. Yeah. Like, what are you going to do? We finally, we actually found a gentleman in Canada that has diabetes that has kind of, I mean, we are paying him, but he has been pretty much a mentor for her, and been helping us as well, because we wanted her to be active and we wanted her to be busy, and between all the negative that she's had, we wanted her to be positive about stuff, and she finally agreed to play softball again. Now we've we're over our head. So I think we're on, like, tournament number four for she's

Scott Benner 36:06
back on to the softball. Didn't give her appendicitis?

Erin 36:10
Yeah, yep, she's back on. It's fine. Life is fine. I don't understand.

Scott Benner 36:13
What's the magic? What's the magic Canadian that you're working with? What does he like? Like, hook her up to a sled and tell her to pull it, and then it's like, see you can do it like, because I don't understand why they're Canadian and what they're doing. I'm confused, right? Okay,

Erin 36:27
so, like I said, we want her to enjoy life as much as normal as possible, right? So we decided, as parents, we have exhausted, you know, the endo the diabetic educators, we've listened to your podcast. We've done everything that we possibly could on our side as parents. So we had found this guy that could mentor her. He's been type one since he was 11, and he's a bodybuilder, and he had talked about personal training, helping people out, and I spoke to him, and what he's pretty much done for us is give us other ideas, other things, to help us focus her diabetes. He's like, you know, because she's so active, our diabetic educators, we bounce back and forth with so many things. Nothing ever gets explained. We struggle, you know, we've had these weird drops during softball that we can't get an answer for. So we reached out to somebody that

Scott Benner 37:28
it's active insulin. By the way, it's active insulin, if she's dropping during softball, I would imagine, yes, yes. We

Erin 37:34
found out. Yeah. Thanks. You know, to everything. He helped explain it. I guess. Are

Scott Benner 37:38
you telling me that your 10 year old has a Canadian life coach.

Erin 37:42
Yes. Oh, okay, yes, very much. So that is exactly what it is. I see she has a coach. And when we have questions that are just, you know, like, hey, what do you think about this? He's like, Well, you know, sounds like she's just very insulin sensitive. Let's, you know, test this out. Let's see what other things we can do to help, you know, make this

Scott Benner 38:02
I didn't know this was the thing. Can I be a life coach?

Erin 38:06
Well, if you have information, I'm assuming so I think you're life coaching, just in a broader spectrum already. Yeah,

Scott Benner 38:11
I might be doing it already. You might be right. But huh? I mean, after I'm done with the podcast, I mean, like, can I be or actually, could we just turn it into a pot? Or have I already turned it into a pot? Oh, it's hard to know. This is such a meta moment for me.

Erin 38:25
Yeah, but no, I mean, it is true. She, she literally does. She has a life coach that is diabetic, that is a, you know, body building pro carb, you know, all the things that you talk about. But he is MDI, and he takes for a long time, nice.

Scott Benner 38:40
I should take PayPal. Okay, no, hold on a second. This is very cool. I don't know how you found this, and I don't promote coaching, like, through my stuff. So, like, just because I can never know who's the good one and who's the bad one, or I would just ask you the person's name. But anyway, like, you know, listen, if this sounds exciting to you, just just Google Canadian yoked diabetes life coach. I'm sure you'll find the person, but, yeah, I just tumbled down a rabbit hole in my own mind. I was like, Huh? You know, people in my own life, people come to me all the time, they have since I was younger, and they're like, here are my problems. What do you think? And then I'd be like, Oh, I would do this and this, like, I can't remember one of my earliest life coaching moments. I guess I was probably like, 20, and this younger kid, like 17, this is gonna sound crazy to people, but ATM machines had just started becoming a thing. So depending on where you live in the world, Mac machines, ATMs. But you know, money access, where you can go stick a card in a wall and money flies out of it. I know you're all like, yeah, we know what that is. But I'm trying to tell you that I once lived in a world where that didn't exist. So you're even like, holy, how old are you? But when they came out, people had problems with they were taking too much money out of the bank, like it was almost like a compulsive thing. And this young kid, like 17 or 18, he worked at a place where my girlfriend. Worked. I was picking her up one night, and he was complaining to people that he's like, he's wasting all of his money. He's going broke. I turned to him and I said, what's happening? He goes, Oh, you know, like, you see something for a couple bucks. And I go to the ATM and I get $5 out. And then before I know what I'm doing, again and again and again. And I said, Oh, okay. I said, How much is a lot of money to you? And he said $20 and I said, Okay, only ever take out $20 from the ATM. And he's like, but then I'll, I'll use more money. And I was like, No, you won't. You'll go to the ATM less frequently because it'll, it'll stop you. And, like, a couple months later, he came back to me, and he was like, Hey, man, I've been saving all kinds of money because I took your advice about the ATM thing. And I was like, Cool. Like, I didn't really care. I was like, whatever. Like, I just love talking. And I was like, yeah, it's great, man. But then I realized I started looking at it. People come to me with their like, you know, dating issues or about they want to talk about money, they want to talk about the world. And they were always asking me what I thought. And so just now I thought, Oh, maybe I could do that as a retirement thing. That sounds great. Like, I can make some extra money. You extra money, you know, being somebody's Canadian, like, friend, and I'll pretend to be in Canada. I'll hang up like a maple leaf behind me or something. Because Canadians are people think they're nicer. So I think it'll go over bigger. And I'll go a and, oh yeah once in a while, but, but then I realized, I'm like, oh my god, maybe that's what the podcast is

Erin 41:21
it? I mean, honestly, you, you probably are, like I said, just in a broader spectrum. Jesus and this gentleman. I mean, he really, I guess you can call him a life coach, but it's like, once you've exhausted,

Scott Benner 41:30
where else are you going to go when you're out of ideas? Yeah, and I feel like our Endo,

Erin 41:35
our diabetic educators, we're at a loss, we're at an impasse. We just they give us what we need for, you know, prescriptions and paperwork and things like that, but for the day to day lifestyle that my daughter is doing and what we want her to continue doing, we needed more information. Okay, so we found somebody that could live that lifestyle and is, you know, is helping her. Oh, I'm seriously

Scott Benner 42:01
good for you for looking positive and not just sitting around going, Oh, woe is me. This sucks. Like, what are we going to do? I'm out of ideas. Oh, well, let's all just jump in the river, you know. Or, yeah, we're

Erin 42:10
all a little tired of, you know, being sucky. We want life to be a little bit better. We're tired of, you know, the roller coaster. So we want to be more positive. And if we can't find the information here, we started looking elsewhere. You know,

Scott Benner 42:25
I tell people all the time, like, listen, I think the information about management stuff is in the podcast. But if you're a person who doesn't learn by listening, or just can't put two and two together while it's happening, like, I get that too. It's not for everybody. You know what I mean? Like, I think I'm comfortable saying that the way I present it seems to work for a lot of people, but it's certainly not going to work for everyone. And also, I might say something that you're just like, yeah, I agreed with that part, but not with that part. I think that's great too. Like, take the information a la carte. And I love that you went to a whole bunch of different sources and pulled together what you needed. That's fantastic. You know, way not to give up. But really, I'm being serious. Like, that's wonderful,

Erin 43:04
yeah, like I said, I we listened religiously to your podcast. It came up in you know, conversation, hey, try this, you know, try this person. Listen to this podcast. You know, see what you think. But it's like, I'm not gonna lie. Start Talking ratios, things like that, my eyes glass over. And I'm like, I hate math.

Scott Benner 43:26
I hear you so, yeah,

Erin 43:27
trying to, you know, relate that and figure that out. But I think, again, like you said, I think a life coach is probably the correct terminology for him, because, yeah, I mean, that's what he's doing. And he speaks to her on Zoom, he we have a weekly call with him, and he asks her, you know, what kind of questions she has, and we try to get as much information of you know, what he's done or what he's tried to, you know, combat these situations that I my brain cannot pull that information. And I'm like, I know I heard about that once upon a time, but I can't find that information. I just want

Scott Benner 44:01
you to be careful, because eight years from now, I don't want her coming to you saying, Mom, I've fallen in love with a 40 year old Canadian life coach, and I'm going to the great white north. Okay, very careful. I'm teasing. But although, if he can take care of her, I guess you're, you're, you're like, well, there's a lot of the only he was if only this guy was 10, knew all this stuff and could grow up with her. This sounds like a really great match, right? Oh, my god, wow. What a out of the box with how did you come up with that idea

Erin 44:29
to find somebody? Yeah? Well, social media, I guess technically, social media just randomly. You know what? I love, our phones. Once you start Googling, searching, one thing you know, populates all this other information. And social media popped up all these different people that were talking about diabetes and the information that he had coincided with a lot of what you had talked about, and the fact that he was MDI and ball overlap, managing it overlapped. And, yeah, yeah. And that. Why we reached out to him, and he had posted like, Hey, I'm taking on clients. I'm, you know, trying to help them. You know, it's very cool. Better themselves physically. I have the,

Scott Benner 45:09
I mean, it's a rule, I guess, that of how I manage some of this stuff, like, whether it's in the Facebook group or here, I don't promote health coaches because I don't have the time or the inclination to figure out which ones are good and which ones aren't, and I don't want to be the reason you go give somebody 1000s of dollars and then they're like, uh, I got ripped off. You know what I mean? Which I think sometimes people take as, oh, you're just saying that health coaches are all like a rip off. I'm not saying that at all. I'm sure there are great ones, and it sounds like you may have found one. I have a pretty big responsibility, like a lot of people hear my voice, right? So I try to be aware of that, and I don't have the infrastructure to set out and figure out which one of these are great and which one of them aren't. And I don't, and to be perfectly honest, I don't want you having a bad experience and blaming me. So you know what I mean, like, so I just don't do it. But then what happens is, like, a half a dozen times a year I get yelled at by a health coach. I'm not hurting anybody. I'm like, didn't say you are just saying we have a flat rule where we can't, you can't be a health coach and be a member of the of the group. I'm sorry, yeah, you know well, and

Erin 46:18
I feel like now that we're two years into it. I'm glad that we didn't start off with health coach, because it gave us time to figure her out, figure things out ourselves. It was just, you know, now we're to the point where we understand the best of our ability at this point. Yeah, we're only getting so much information from these other sources. What other sources can we pull or, or, you know, or her. And as parents, it's like, well, if it costs me money, I'm gonna still find somebody that's gonna help her. And if it helps her, great,

Scott Benner 46:50
cool. Can I ask you what it cost? Would you tell me if I asked you what it cost? I'm trying to think what it cost. I'm trying to think I'm so interested if you're gonna be embarrassed, or if you're just gonna tell if you're gonna be like, Oh,

Erin 47:02
actually, I'm not. Embarrassed at all. Like I said, you know, as a parent, I'm like, I would pay for what we're everything that I owned, yeah, to find anything to help her. So I think I want to say we're doing four months and it's like, $800

Scott Benner 47:16
Okay, I want everyone listening to send me $800 right now. Okay, that's it. Of advice, yeah, and just figure out where I am or whatever. Send me $800 and we'll all call it even, okay, and that'll be that I just, I have to tell you something. Aaron, if everyone sent me $800 right now, I'd be wealthy. That's what I'm looking for. I'm just, please don't send me money. I'm just joking. I want to make sure you're done asking everything you've asked, saying everything you want to say, because I have a question that's outside of our conversation that I want to record. So I don't want to run out of time and you have to go help people help make sure you've said everything, or is there anything left? Yeah,

Erin 47:53
yeah, no. Like I said, I we have been in a very dark two years, and with my daughter, we are finally feeling that things are getting much better. And you know, the time frame of this phone call just worked out really well, you know, because when I first set up this call, no, we did not have our Canadian life coach at that point in time, and it was post surgery, so I was in a very dark, mad, upset place, you know, damn diabetes, damn appendicitis. You know, life is just kind of key, to be honest. I'm very positive right now. I'm very happy she's thriving. And that's that's the most important thing as a parent, is having her thrive. I like the quick turnaround. Having a life coach for her has been great. It's been helpful for us. And all the information that we've gathered from you, it really does help. Yeah, but to be positive, seriously,

Scott Benner 48:45
very cool that you figured something out and that you went from like, where you were when six months ago. You're like, I want to be on this podcast, because everything sucks, and I gotta tell people, everything's fucks. And now you're like, hey, everything doesn't suck as much. And I think you know, you'll hear me tell people all the time that, um, things get better much more quickly than you imagine. And like, you know, in this moment around diagnosis, or while you're trapped in those feelings, you think, this is the rest of my life, and all these things you describe about how your son feels and how your daughter feels, and what happened to softball. And, you know, why is this happening? You think, oh, this is how I'm gonna feel forever, but it's just not true. Like you. I always tell people, a year from now, you're gonna look back and think I don't even recognize myself anymore. And you you got to that, so that's very cool. Yeah. Thank you. Really. Excellent. So now here's my question, you work in a dental office? I do. You don't have to say, where do you clean teeth? Or are you an assistant, or are you a dentist? I'm a dental hygienist, so I clean teeth perfect. I'm going to ask you a question, and you answer me honestly, if you can. Okay, is it a scam when you clean my teeth? Because here's what it feels like happens. It feels like you take a spear and you jam it down between my tooth and my gum line, and you go, Oh, bleed. Saying you're going to need trays, because everyone thinks, yeah, what's bleeding? Because you just poke me with a needle. And then they say things like, there's a gap here. This one's a three, this one's a two. We don't we just don't want any fives. Oh, there's a bleeder, but it's a four. But you're saying that while you're poking me with a sharp piece of metal, are you just trying to are you trying to steal my money and get a deep cleaning because the insurance doesn't pay for it? You want a little cash? Go ahead and tell me the truth. That's

Erin 50:27
hilarious. So to be honest, I am not that kind of hygienist. I I don't like to diagnose that way, but to tell you the truth, the little probe that we use is blunted, so it's not sharp, it's not a spear. So if you are bleeding, that means that you do have inflammation underneath your gum line. And I tell people, think of it like an ulcer. It's fine until you start touching it or rubbing it, and that's when it bleeds. So it's incognito until I start rubbing on it, is technically what I do. I love that

Scott Benner 50:56
you said rubbing on it. That was very creepy, parents like until I start rubbing on your mouth, and then you'll know what's going on. Yeah, yeah. No, wait, wait, wait, wait, hold on. There's people have a lot of questions here. I was just talking about this with the editor the other day. He's listening to it now, going, oh my god, we did talk about that months ago. That's hilarious. What about the trait like, what? Or hold on, what is the inflammation a sign of besides inflammation, is it a sign of anything else? So it's just

Erin 51:21
a sign that you have pretty much a bacterial overgrowth underneath your gum line, and that it causes infection, and that infection causes bleeding. So bleeding is an indicator of infection or irritation. And is

Scott Benner 51:33
that going to kill me? Because they make it sound like I'm gonna have a heart attack because of it. So just

Erin 51:37
like you talk about with diabetes, it's not gonna kill you tomorrow, but long term, you will have complications. Yes,

Scott Benner 51:44
I'm gonna die because I have a four pocket in my tooth by my molar. I got you now, and brushing doesn't help. It does flossing, flossing,

Erin 51:53
water, picking, yes, that's about the only thing. And getting your teeth cleaned is the only thing that gets that bacteria out

Scott Benner 51:59
of there. Okay? And what about when they charge me a million dollars to make a mold in my mouth and, say, squirt some gel in this and then stick it in and hold it in there for 10 minutes and use your trays or whatever? Is that a thing you sell, or is that a scam?

Erin 52:13
I personally don't do those. I've heard about them, so I couldn't tell you exactly when it comes to that. But I hate to tell you, dentistry is a business too, and everything is expensive.

Scott Benner 52:25
I don't mind it being expensive, if it helps me. I don't want to have a heart attack. But like I'm saying, are the trays like, are they snake oil? Or do you think they really do something? I

Erin 52:34
think they use peroxide in them, and peroxide helps to oxidize the bacteria. And in that aspect, it does help.

Scott Benner 52:42
I don't love your answer. Okay? I feel like if I stop this recording, you're going to be like, Scott, go get your money back for those trays. Break the front window if you have to. They owe you, but I don't, but I feel like you don't want to say it now. So the real answer is, I mean, I want to be clear. I do brush my teeth, but Brush, brush, floss and water. Pick, like, I should jam like, down the side with some like, when I get the deep clean, do the deep cleaning with the water. Do you do that? I do,

Erin 53:09
but just a water pick, like, the ones that you see at the store that just are, that stream of water flushing that underneath there brings that oxygen into those pockets. And with the oxygen in the pockets, it helps decrease those bacteria. Got

Scott Benner 53:21
it my last question, because you do have to go help somebody right now at work, why do dental hygienists talk to me while they're in my mouth?

Erin 53:29
Because you're a captive audience, and we don't have anybody else to talk to, and because we say everything exact same all the time, like it feels like scripted. I tell everybody to floss. I tell everybody to brush. I tell them kind of nice to have somebody that doesn't talk back to you. You just talk to

Scott Benner 53:45
them so you're not expecting me to reply.

Erin 53:47
No, no. It's a direct like, are you flossing? And then wait for my fingers to leave your mouth, and then please reply. But if I'm just telling you about my kid or something like that, a little, you know, I little eye contact or a little head nod, works just fine. Okay, okay. All

Scott Benner 54:04
right, they're listening to me. I feel a lot of pressure in that situation. I'm like, this is a deep question. I have answers. Hold on a second. Oh, that's why I'm in there. So long. All right, I'm just gonna shut up next time. Okay, Aaron, thank you. Go clean someone's teeth. All

Erin 54:16
right, Scott, thank you so much. Take care. Have a good day. You too. Bye. You this

Scott Benner 54:20
episode of the juice box podcast was sponsored by us Med, us, med.com/juice, box, or call, 888-721-1514, get started today with us. Med links in the show notes, links at Juicebox Podcast com. Today's episode was sponsored by Medtronic diabetes, and Earlier you heard from Maddie, who shared with us what finding Medtronic meant for her. Learn more about hyperglycemia at Medtronic diabetes.com/hyper. Hey, you listened all the way to the end. You might want to know more about the Juicebox Podcast. If you do, go to Juicebox podcast.com scroll down to the bottom and subscribe to the Juicebox Podcast newsletter. Each week. You'll get a rundown of the shows from the past week, just in case you missed something and you think, Oh, I would have loved that. Now I know if you're ready to level up your diabetes care, the diabetes Pro Tip series from the Juicebox. Podcast focuses on simple strategies for living well with type one. The Pro Tip episodes contain easy to understand concepts that will increase your knowledge of how insulin works and so much more, my daughter has had an A, 1c, between five, two and six, four, since 2014 with zero diet restrictions, and some of those years include her in college. This information works for children, adults and for the newly diagnosed and for those who have been struggling for years, go to Juicebox podcast.com and click on diabetes pro tip in the menu, or head over to Episode 1000 of the Juicebox Podcast to get started today with the episode newly diagnosed, we're starting over and then continue right on to Episode 1025 that's the entire Pro Tip series. Episode 1000 to 1025 thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. Hey, what's up everybody? If you've noticed that the podcast sounds better. And you're thinking like, how does that happen? What you're hearing is Rob at wrong way, recording doing his magic to these files. So if you want him to do his magic to you, wrong way. Recording.com, you got a podcast. You want somebody to edit it. You want rob you.

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