How Would You Handle a 75 BG?
Always fighting rebound highs? Maybe you're over treating...
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There's not much text needed for this post, it's more for you to follow (orange numbers) and ask yourself, "What would I have done". Find the cause and effect that I created and use the information to help you make a better adjustment next time.
1. Arden's BG was 145 at 7 am. I bolused. .45 to try and get her as close to 90 as I could.
- It got a bit lower than I hoped.
2. The drift I caused with the .45 took her BG to 75 where it stayed steady.
- I may not have done anything if she was home but at school we wanted to bump it.
3. I set a temporary basal rate on her OmniPod, stopping insulin for a half hour and Arden ate one four carb glucose tablet.
4. No reason to panic, 75 BG is staying steady. Trusting that the temp basal and carbs will do what I expect. It does 40 minutes later.
- Temp basal can take 30-60 minutes to take effect.
5. Watching up arrow, don't want to get much higher.
6. Perfect landing! #A1cYaLater
Recipe: No (Well, much less) Spike White Bread
The world seems to be telling us not to eat bread, but bread tastes good!
The problem is that most bread that we buy is filled with preservatives, additives and other 'ives' that aren't good for us and only exist to extend product shelf life. They also seem to spike Arden's BG like theres no tomorrow. So I started making my own bread. No high fructose corn syrup, calcium stearoyl-2, lactylate or diglycerides (whatever the hell those are).
I'm not telling you that you can eat a loaf of this bread without a blip on your CGM graph but it does make a sandwich or dinner side much more manageable. Here's the best recipe that I've found, it requires a bread machine. Also you'll notice that the flour is weighed, this is a totally necessary step to get a consistent loaf.
- 1 cup lukewarm water
- 1/3 cup lukewarm milk
- 3 tablespoons butter
- 3 tablespoons sugar
- 1 1/2 teaspoons salt
- 1 1/2 teaspoons active dry yeast
- 480 Grams of bread flour, I use King Arthur
- 1 tablespoon of vital wheat gluten
directions from King Arthur
- Put all of the ingredients into your machine in the order recommended by the manufacturer.
- Program the machine for basic white bread, and press Start.
- When the loaf is done, remove the pan from the machine. After about 5 minutes, gently shake the pan to dislodge the loaf, and turn it out onto a rack to cool.
directions from scott
- Add in this order. Water (just warm enough that it can warm the milk) - milk - sugar - salt - butter (cut into a few pieces) - flour (mounded high enough to keep the yeast from touching the liquid) - gluten - make a nest in the flour for the yeast.
- Basic white bread setting, light crust.
- When the loaf is done, remove the pan from the machine. After about 5 minutes, gently shake the pan to dislodge the loaf, and turn it out onto a rack to cool.
- Have a piece warm with butter, because bread tastes good!
I've included an Amazon associate link to the bread machine that I bought. It is expensive compared to many others but its a workhorse and making bread in a machine is more difficult than you would initially think, this machine makes the process a snap. Many machines don't do a good job, this on does.
In the end, cooking with simple natural ingredients helps managing diabetes and in everyday health. There's no real secret here. We also have a lot of luck with this pancake recipe. Good luck with those spikes and don't forget to pre-bolus!
Diabetes Hell Week
We've recently emerged from a diabetes hell week, it was a doozy! Unexplainable high blood sugars that last half of a day were followed by perfect BGs that would suddenly fluctuate in either or both directs. I didn't sleep very long most nights during this period and at times I thought perhaps someone had switched Arden's insulin with water.
Shit was bananas and I couldn't figure out how many carbs were in it...
Not wanting to be left out of the fun, our diabetes technology also acted flaky once or twice during hell week - during one such incident I found myself wondering, "How does it know to f%^* with me right now?".
As a rough afternoon with type 1 diabetes turned into a long day and that day into a week, I found myself making some of the same mistakes I've made in the past. I'm hoping that this post will serve as a reminder for me (and you) so I can avoid them next time.
The mistakes...
- I was willing to trade my health for better BGs when what I should have done is played a Get Out of Diabetes Free card and asked Kelly for help. Instead, I passed out on the sofa one night as I was trying and ultimately failing to stay awake for another long night of BG battling.
- I fell down the rabbit hole of wondering what Arden will do when she gets older during times like this.
- I was too tired the next day to cook and stopped eating well, this exasperated the situation by sapping my energy further.
I did manage to do a few things right...
- I injected when I thought an infusion site was to blame for a high BG - sometimes it was the site, sometimes in wasn't.
- I kept Arden hydrated.
- We didn't use diabetes as an excuse to stop doing our day-to-day stuff. It sucked but Arden took a hitting (softball) lesson with a BG over 280, she made it to school with shaky numbers and went to the mall with friends in the middle of a BG nightmare (New site, almost 400 BG and a Dexcom sensor that was so confused by the high it stopped working for 3 hours). We adjusted and kept moving. BG was around 100 when she arrived home.
What I took from hell week
A few things stuck with me after the craziness passed and normalcy returned.
- I already knew this first one but was reminded again, I can't be here for Arden if I'm not here. My health is important.
- Staying fluid is monumental and attitude goes a long way to effecting reality.
- I don't have to cry anymore when I begin to wonder what Arden will do when she moves out because diabetes technology has evolved so that we can be with her if/when she has the need. Now that continuous glucose monitoring technology is in the cloud, Arden can call from college or anywhere and say, "I'm not feeling well and I want to take a nap... can you watch my blood sugar?". I am so grateful for the Dexcom Share2 for this and for taking away my annual What is Arden going to do when she gets older cry-a-thon.
Miranda
Last night as Arden was attempting to stretch out her bedtime by doing her Miranda Sings impression, I mentioned to Kelly that Arden suddenly looks more mature. Her face looks different and her body seems stronger. It was one of those moments when you could swear that she grew since the morning. I thought to myself, "This must be why her blood sugars have been so crazy lately" then I smiled - maybe the smile was from Arden's rather spot on Miranda impression, maybe it was from knowing that hell week was for a good cause - maybe it was a bit of both.
What ever you do... do not go to YouTube and search Miranda Sings - you have been warned!
Rainy Days and Mondays have nothing on Diabetes
The topic for day three of Diabetes Blog Week is 'What Brings Me Down'...
Check out all of the entires for Diabetes Blog Week
My 'What brings me down' post is based on the last twenty-four hours...
It brings me down when diabetes causes the rest of my life to get put on hold...
It brings me down to have to call the parent of one of Arden's friends to explain diabetes...
It brings me down when they don't seem to understand...
It brings me down when I find myself speaking, about the things that person will need to do if Arden is to attend an event, in an apologetic tone...
It brings me down when I realize that the weight of my message wasn't felt...
These things bring me down because it is completely understandable that a diabetes novice wouldn't understand.
It brings me down that Arden's diabetes technology always seems to provide a let down in these situations...
It brings me down when a pump site fails at the most inopportune moment...
It brings me down that the time I was trying to spend with my son got cut short because of the site change...
It brings me down when I have to change a pump in a car...
It brings me down when I have to inject because the pump site failed...
It brings me down that it feels like every time a DexCom sensor fails to keep up with Arden's BG, it's during a moment like this...
It brings me down when I think I'm fighting with a stubborn 200 BG and it's really 430...
It brings me down when Arden doesn't feel well because of that 430...
It brings me down that in the middle of writing this I'm texting with Arden about a rising BG...
It brings me down when Arden feels sick from her BG while she is trying to play softball...
It brings me down when my wife texts me to say that she seems to be struggling because of it...
It brought me down that I wasn't there...
It brought me down when it took me too long to mentally get back to my son...
It brings me down when my wife called me as I was coming home to tell me about a bad BG incident that happened while I was cheering at a baseball game...
It brings me down when Arden is unsafe...
It brings me down when her BG drops so fast...
It brings me down when I look in my wife's eyes as see tells me about it later...
It brings me down to see my family sad...
It makes me happy to write about it here.
Because today is a new day.
Because everyone is fine.
and will be fine.
It's makes me happy to tell you that this was just a bad day, just an unlucky collection of coincidences...
Diabetes can bring you down sometimes but there is no rule about how long you have to stay down. In many ways living with diabetes is like the graph on your CGM screen. Steady mostly, with down and up moments. Some highs last longer than others, some lows hit you hard and some come and go. I guess that most everything in life could be described with those words.
#DBlogWeek
Kris Freeman: The Arden's Day Interview
The road to my interview with Kris Freeman starts when he posts this picture on Twitter as the Sochi Olympics are beginning. The photo of Kris and his fellow US cross country teammate Kikkan Randall (say Key-Can) caused me to have two distinct thoughts, “I am significantly out of shape” and “This reminds me of a point in my life when I was afraid that my daughter Arden was too lean to wear an insulin pump or continuous glucose monitor (CGM).
I immediately reached out to Kris and inquired about using his image in a blog post that I wanted to write called “Worried Your Child Is Too Lean For An Insulin Pump Or Cgm?”. Kris, very generously agreed and then I asked him if he would be willing to do an interview with me after he arrived home from Sochi.
My interview with four time Olympic athlete and type I diabetic, Kris Freeman
Scott: When you posted the photo was this just you celebrating the games starting with a friend or did you have an idea that it would help people who wear insulin pumps and CGMs?
Kris: We were just playing around… we were both just taking off our wet shirts from training and I was like, “Hey this might be cool, lets take a picture”.
I told Kris how I wanted to use his photo to help lend Arden’s Day readers the same support that I was offered many years ago on Twitter. It was then that a woman in her thirties reached out and told me that she was lean (like Arden) and had no trouble finding good sites for her pump. That brief conversation took away my apprehension about Arden starting on an insulin pump and I wanted to return the favor . "My blog posts are fine" I thought, but this picture of Kris is certainly more inviting, informative and poignant then any words I could throw together. It really makes the point that a person can find a pump or CGM site no matter their body type.
S: The blog post that included the picture of you with Kikkan is one of the most popular posts that has ever appeared on my blog. Seeing an insulin pump and CGM working on such a lean person was inspiring for so many people who live with type I diabetes and their parents.
S: What is your average body fat when you are in competition shape?
K: I go off of a body fat monitoring scale and I range anywhere from 4 to 8 percent. The scale has some inaccuracy in it depending on your hydration level, but I harbor around 5 to 6 percent normally.
I asked Kris if he knew the average body fat for an adult, he wasn’t positive but he guessed it may be around twenty… I looked down as he was speaking and thought, “What must mine be...?”.
S: How many hours a week do you train to maintain that level of fitness.
Kris gave a complete answer about varying his effort, “Each month I’ll have two hard weeks and two easier weeks, so that my body doesn’t get used to a certain load”. “I also change the amount of volume from month to month”. He says that he trains the hardest in August and September and then through October, November, December the volume comes down but that during those months, “I train harder, I ski faster, do intervals… training my anaerobic system instead of my aerobic system”. “If you want to just know how man hours a week I average, last year I trained about nine hundred hours for the year. That includes one off day a week and illnesses that don’t allow me to train”.
I did some quick math and it sounds to me like Kris trains on average of twenty to twenty-two hours per week, or the equivalent of the amount of exercise that I did between 2008 and 2010.
K: My biggest training days are five to six hours and the smallest is one to two.
S: Since there isn’t always snow available, how do you train for cross-country year round?
Kris training on Roller Skis. Image courtesy Krisfreeman.net
K: I do a lot of dry land training, I use roller skis. They look kind of like roller blades but they attach with the same boot and binding as my skis. They are remarkably good at mimicking the muscle use of skis, it’s just a different feeling to be rolling instead of gliding.
S: When we were watching you ski at the Sochi games it occurred to me that your life is kind of like a living diabetes blog. That the simple act of you going about your day is an act of support and relief for people who live with diabetes and the people who love them. I’ve received countless letters over the years that thank me for sharing our life with diabetes here on the blog, people often say that it "saves" them. I was wondering, do you see that your presence in the public eye is doing the same for people?
I loved Kris’s answer
K: I have never set out to be a role model or an inspiration in the diabetes world. I was just doing what I love to do and I found solutions with my own diabetes care that allowed me to do it. I was alerted that what I was doing was inspiring other people and so over time I’ve embraced the image of a role model but it was never something that I thought of (about) myself.
I tried a few more times to give Kris credit for the example that he provides for the diabetes community but he remained very humble. I could tell how incredibly pleased he was that his life as an Olympic athlete is uplifting to the community, he insisted that he is glad he can inspire people but, “I’m still just me and I’m trying to be the best ski racer and person that I can be, I don’t get out the door everyday and think I’m going to be an inspiration.”
I told Kris that when we watched him compete at Sochi I was struck by the amount of effort and training that cross country requires and thought that it must seem, to most people who have diabetes, to be something that is out of reach for them. I wondered aloud if people with diabetes identify with the image of him working so hard to reach a difficult result.
S: Your life is a figurative example of diabetes. There is no end to the amount of effort that you have to put in, your footing is never secure and it almost always feels like you are slogging up an incline. I guess you can paint parallels between almost anything, but this one seems pretty obvious. It’s possible that when people are watching you ski, they see themselves in your effort. I hear it in your voice and I’ve spoken with you before… I know you're not trying to be a role model, and I’m not a big believer in role models. I don’t think that anyone should be looking to other people and expecting them to live their life in a certain way, but when it happens organically, it’s beautiful. You're living a blog… and it’s helping people.
We spoke about the interview that he did with The Olympic Zone on NBC and I remarked at how popular it was in the diabetes community.
S: The NBC interview was shared online, liked and commented on furiously. In my opinion it helped people to understand that their diabetes can’t hold them back and it takes away some of the fear that parents of children with type I may have. Seeing you on that stage doing this incredibly difficult thing, it lets parents know that their kids lives can still be all that they hoped for when they first held them as newborns. How does it feel to hear that and to have the support of so many people who identify with you?
K: For sure, knowing that people are watching and are encouraged by what I am doing is inspirational to me. Similar to the advocacy work I do with Lilly visiting summer camps*. I know that I’m having a strong impact on other people… even though it’s hard for me to believe. I know in the back of my head.
S: Does competing at such a high level change your definite of success? I know you weren’t happy with your results at the games.
Kris at ADA Camp Triangle D in Ingleside, Illinois. Image courtesy of Lilly Diabetes
K: I’ve been fourth at the world before at the World Championships, which is the same level of competition as the Olympics, so finishing in the fifties was not impressive (to me). I was not on my A game at the Olympics, I wish that I could show what a diabetic can do, but at the same time... maybe that doesn’t matter to the (diabetes) community. Maybe it just matters that I was there and that I’m a competitive athlete.
S: The difference between first place and last was only a few minutes, I guess in your world thats an eternity but I was like, “Sh*t I’d give them all a medal”. Is that kind of a finish motivation to keep going?
K: I’ve been closer in my career and I know what I’m capable of when I’m at my best and I was just not there. That happens. I missed something in training, my coaches and I still don’t know (what) but usually it becomes apparent later. The drive to be the best in the world is the same drive that gets you to the Olympics. You don’t get to the Olympics because you are satisfied with where you are. You get there because you want to be the best in the world and when you get there, you want to be the best (on that stage).
K: This reminds me of a question that I get at the camps a lot. People ask, “are you the best diabetic athlete in the world?”. I always say I don’t think about that and I don’t really care if I am or I’m not, I’m trying to be the best athlete and skier that I can be. I don’t identify myself first and foremost as diabetic person. It’s part of who I am, I’ve never been ashamed of it. I’m very open with it and I like educating people about the disease, but it is not my primary identifier.
S: How do you rebound from Sochi, is it more metal or physical.
Audio answer
S: In regards to the answer that you just gave. I see a strong correlation between it and diabetes. Do you see that as well?
Audio answer
S: Do you have Olympic aspirations for 2018 in South Korea?
K: I’m not going to rule it out but I’d say the likelihood isn’t great. I’m will only continue ski racing as long as I can stay at a very high, international level. Definitely racing next year and if I continue to race to my standards then I will continue the next year, and the next year and that year will be an Olympic year. If I’m tired and my body is not responding to training anymore, as sometimes people don’t when they reach my age, then this next year will be my last year. But I don’t expect it to be.
S: So your professional skiing goals are to keep skiing and doing your best, and see where that leads you?
K: I have higher goals than that. I’d like a top ten finish at the World Championships next year, I’d like to stand on top of the podium again at U.S. Nationals. I think that those are both attainable goals, they are also high goals. I’m not interested in staying in the sport to watch my skills slowly deteriorate. I want to stay in while I’m still competitive and I’m going to give myself another year to do that.
S: What do you want to do after skiing ends?
K: I plan on venting my competitiveness by going into semi-pro triathlon, the very next year.
S: Aside from the competitive nature of the sport, what do you love about skiing?
K: One of the coolest things about cross country skiing is that you never have to stop, you don’t get to the bottom of a run and have to get on a lift. Every time I do it I get a little better at it, a little more efficient. To just know that I can go out and ski fifty miles without being exhausted, just kind of gliding… it is really cool. I’ve been exposed to and competed in all kinds of skiing, but cross country is what brings me back.
S: I wanted to finish by sharing something with you. The day after your NBC interview Arden went to school and talked about you during her share time. She told her class that she knew a man that was in the Olympics and that he skis on “those really difficult courses”. His name is Kris and he has diabetes just like me, he even wears the same insulin pump and CGM as me.
I explained to Kris that the kids are all aware of Arden’s type I and about how we manage her BGs during the day without her ever leaving class.
Because of our level of transparency, the other children and teachers are very aware of Arden’s diabetes. Even though they see it up close, there are still many who believe that it will limit her. I told Kris that Arden was able to stand in front of her class and tell everyone (in essence) that this person who is competing at the Olympics, this guy who looks like a superhero - he’s me. I don’t have limits.
S: I’m pretty sure that if Arden did that the next day, well, I bet a lot of kids did the same and I’m certain that people with diabetes everywhere also felt that same message of hope and fearlessness from watching you.
K: I hope that’s true, I think that so many of the limits that are placed on diabetics are based more on ignorance or outdated ideas of what the disease means. I like to say that there are no limits to diabetes as long as you take responsibility and treat it.
links
Kris is on Twitter @TeamFreebirdXC
Lilly Camp Care Package - * Camps run by the ADA and the Diabetes Education and Camping Association. Lilly supports the camps by donating supplies.
Check out Scott's book, Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad