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Podcast Episodes

The Juicebox Podcast is from the writer of the popular diabetes parenting blog Arden's Day and the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad'. Hosted by Scott Benner, the show features intimate conversations of living and parenting with type I diabetes.

Filtering by Category: Dexcom

#657 Eavesdrop On Our Call

Scott Benner

Amanda wants to talk about her sons type 1 diabetes.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 657 of the Juicebox Podcast.

Back in the day, I used to talk to a lot of people on the phone about type one diabetes. I still do it every once in a while now, but not too much anymore. Recently, Amanda reached out to me, and she was looking for help. And I said, Well, I can talk to you, but I don't know when I can do it. But if you're willing to let me record it, then I can do it sooner. She said, okay, and then that's what we did. So Amanda is the mother of a child with type one diabetes. And today she and I are going to talk about her questions. It's going to be like listening in on a phone call between Amanda and myself. Please remember that while you're listening to the Juicebox Podcast, that nothing you hear, wow, I just forgot the thing. Never happened before. Wow, I'm stunned. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. Or becoming bold with insulin. That's never happened before. It's very interesting.

Hey, welcome a new sponsor, won't you pretend I'm playing a bunch of like fancy music here like a carnation is happening or what was that music when they presented Simba for the first time? You don't mean play that in your head? That whole thing with it, and he said it about uniform. Alright, you get that going in your head right now. Ready? You gotta go. Alright, this episode of The Juicebox Podcast is sponsored by us med. US med provides 90 days worth of the supplies that you need. And they also have fast and free shipping. If you want better service and better care. Try us med you can get your free benefits check at us med.com forward slash juicebox. Or use this dedicated phone number just for Juicebox Podcast listeners. 808-721-1514. It's pretty cool, right? A new sponsor. This episode is also sponsored by someone else you want to hear about it. Why not? This episode of The Juicebox Podcast is sponsored by touched by type one, Learn more at touched by type one.org Or follow them on Facebook and Instagram.

Amanda 2:46
I am Amanda. I'm a mom to two boys. My oldest is let's see. He's 13. And will he'll be 14 in January and my youngest is 11. My youngest is the type one. And he was just diagnosed in May of this year. Cinco de Mayo actually.

Scott Benner 3:04
Oh, celebrate. Yeah, yeah,

Amanda 3:08
exactly. Normally, we would have been. Yeah,

Scott Benner 3:11
right. But instead of a set of a beer and salsa, you're Yeah, in the hospital.

Amanda 3:17
We were getting all educated.

Scott Benner 3:19
Let me I know, we're we're talking today for a really specific reason. But just just for a second. So we get to know you a little bit. Was there any sign of this? Is it in the family? Anything like that?

Amanda 3:30
Yeah, good question. So we do have autoimmunity in the family, but no type one diabetes. And oddly enough, exactly six days after my son was diagnosed, who's the first in the family that I'm aware of? My niece, my brother's daughter was diagnosed. Okay, exactly six days later, and she was diagnosed. I mean, I really because they saw they heard our story and her the symptoms that we saw on our son and they're like, oh, that's odd. Our daughter is this doing the same things. And so they took her in and oddly enough, she also had it.

Scott Benner 4:03
When I hear that you know what it makes me think what? I'm so disappointed in my Spanish I can make a joke if I knew what six days later was called, and then I could say de mio after it. And I was like I said, I'm like quatro, cinco, say, you know, trying to get and I'm like, I got like three more passed, and I was like, I'm never gonna make it six. And go damn it. Yeah, that's interesting. Now there's two of them. And now the whole family is on the lookout to I bet

Amanda 4:32
you got it. Yep. Cuz there's a lot more cousins to go.

Scott Benner 4:37
Yeah, no, nobody's gonna ever get to pee three times and a half a day. You're in your family ever again.

Amanda 4:42
Seriously without somebody looking with a funny eye? Yeah.

Scott Benner 4:46
Well, how's it so means not that long ago. Now for four months, maybe? A little more. How? And and we're talking today because you reached out privately for help right now. I was kind of so overwhelmed that I said, Can we just do it on the podcast? Is that? Am I remembering that correctly? Yeah. Okay. So this is going to be either interesting or upsetting to people, we'll find out, but it's going to help me. The reason I say that is because when I'm having a conversation on the podcast for you all to listen to, it's a little more. I'm more worried about the flow of it. I'm worried that you're having, you know, your part of the conversation that we're getting out what you think. But this conversation is going to be a lot of me asking questions, and then you answering the questions. And me saying stuff. So it's gonna be less conversational, but you're up for that you already know. I just want people listening to know that, you know, this is, this is basically my idea with this is when I speak to somebody privately on the phone, we're gonna record it today. So and you were mad, or you were very nice to to agree to that. So. All right, all right. Anytime, please, anytime. situation, you're gonna have to have another kid with diabetes. So we can do that again. So you don't really mean. Right? Let me get my note here so I can write some things down. Kelly bought me this little whiteboard that goes in front of me while I'm on the podcast and very helpful. Okay. How old? Tell me it's 1111 How long? Five months? Five months? What? Insulin cumilla Log? Pump, no pump.

Amanda 6:35
She has the tandem are using control

Scott Benner 6:39
IQ. Yes. Dexcom G six. Yes. How much does he weigh?

Amanda 6:50
Roughly 80 pounds.

Scott Benner 6:53
What's his Basal rate?

Amanda 6:56
You're gonna ask me, I'm trying to pull it up. Because it changes I think weekly at this point. That's

Scott Benner 7:01
fine. Arden sick right now. I have her insulin doubled. Everything's doubled. I'm barely able to keep her blood sugar under 180.

Amanda 7:09
Yeah, so that happened to me. Last week, I want to say he had a head cold and I was like, getting insulin like a mad person and he literally doubled his

Scott Benner 7:21
Basal rate. Yeah, but what is it normal?

Amanda 7:24
So normally he is getting roughly around six units a day. So he's like, I'm doing five units an hour it fluctuates a little bit between night and day time six divided

Scott Benner 7:39
by 24.25 Do you think he's honeymooning? Absolutely. Would you describe your diet as a generic American diet? Are you doing something specific?

Amanda 7:56
Oh, no. He's generic American. His let me tell you his favorite meals are macaroni and cheese. If you know anything about the Midwest, you know, Skyline chili, which most people don't like if you don't if you're not born here, but it's pasta with chili on top of it. Yeah. And cheese and crackers also and then hot dogs. And oh, almond butter graham crackers. That's like his. Those are his favorites. So really fun to control.

Scott Benner 8:27
Yeah, graham crackers are tough. Yeah, yep, they are. Okay. How Midwest are you? Like, have you ever deep fried an Oreo?

Amanda 8:37
So they do do that here. I've never had them good for

Scott Benner 8:39
you. Quick side aside, my brother moved to Wisconsin years ago. And he came home with a woman who he eventually ended up marrying one day and she brought like, you know, she tried to bring treats like something colloquial to the time of year. And she brings these kind of like gallon zipper bags full of I don't remember what she called them. But you know, when you go in the grocery store near the potato chip aisle, and there's these like, cheese balls. Like they're like these, but they're popcorn. So they're air pop balls. I don't even they're not really popcorn, you know? I mean? And then they were soaked in sugar. Oh my gosh. And she's like, I make these with my mom at Christmas. I was like, This is not okay. Like you took a you took a thing that's not food. Like it's a pretend food. Right? It's not really even popcorn. And you soaked it in Carmel or something or sugar. And and now you're eating it by the handful. And it was very reminiscent of the holiday for her. Oh, yeah. And like, right. It was like a thing she did when she was a kid. Mm hmm. It was like I was like, I don't understand what this is. It's like It's like low rent. Carmel pop corner. I couldn't supposed to be exactly Like, how hard is it to procure actual popcorn and put Carmel on it? Like that can't be it no difficulty. It was it was a step away from taking a Cheeto and and soaking it in shucker

Amanda 10:11
oh my gosh, yeah, we do a lot of things like that here where I'm from lots of things that are deep fried. And I mean, yeah,

Scott Benner 10:18
yeah. And that this is not an uncommon conversation when I end up on the phone with people who are from Minnesota, Wisconsin, you know, the top part of Illinois like that, like right there. Like we're around those lakes for some reason, like you guys can get food, right. There's no trouble with that. Is there? No. Like the trucks go to where you are? Right? They do. Yeah. Anyway, well, listen, I think we should stop talking about your son's health right now open a case of beer. And talk about the Packers until we just start punching each other would that be okay, that's a great idea. Yeah. All right. What's the problem?

Amanda 10:59
Oh, gosh, that's a loaded question. So it changes constantly, I feel like I feel like I am throwing darts and seeing what sticks most of the time. So I, I feel I've listened to a lot of the podcasts, I've read all the books, I'm the kind of person where when something goes wrong, or you know, however you want to say it, if something goes wrong, I put my head down, and I dig in, and I try to fix it. And I keep learning and trying to, you know, find different ways to go about fixing it until I have the problem fix. Well, this problem you can't fix, right? You can only manage. So I'm doing the best that I can to manage it as quickly as possible. Like I don't want to wait five years to learn all the things that I need to learn. I want to learn it right now and figure it out, which I know isn't entirely possible. But I'm doing the best that I can to kind of speed up time a little bit. Okay,

Scott Benner 11:53
that's a good answer. No.

Amanda 11:55
Yeah. So I think my issue mostly is with trying to figure out and like I said, I feel like it kind of changes day to day with what the issue is, but it's trying to figure out for me, we have a lot of times when right now he's having a lot more lows, and I would like him to have

Scott Benner 12:12
what do you what's a low? Give me a number? Yeah, so

Amanda 12:15
he'll go. Usually he doesn't go below 65. Like he'll he'll start he'll dip down somewhere between, you know, 60 and 70. And we usually catch it before it goes below that. But I would say, I don't know, two to three times a week he'll get down into the 50s. Occasionally a 40. He's a super active kid. That's the other thing. So he does competitive soccer. He does motocross. He does wakeboarding. I mean if it goes fast, and you can die from it,

Scott Benner 12:43
he does it. Gotcha. That's right. That's helpful for your, for your soul. Yeah,

Amanda 12:49
exactly. So. So he's really hard to keep up with because he's just constantly in motion. And so part of it is that I think in my want my desire to keep him from having peaks, particularly after food. So I have a lot of times where I'll do about Pre-Bolus him, and I'll get that I'll watch his CGM, and he'll start to dip. I don't really wait for the arrow necessarily, because I found that if I wait for the arrow to go diagonal, then it's too I've waited too long. And he's gonna go low for sure. Because usually when we're Pre-Bolus, and he usually is in the know, under 100. I mean, usually he's 80 to 90, I would say most of the time. So I Pre-Bolus. I wait for the numbers to go down and then put the food in. And then sometimes he'll dip down into like the 60s, which I know my Pre-Bolus time is off. But then the thing that throws me, it's hillclimb to 150, which I know in theory isn't very high. But when you're going from 60 to 150, it feels like that's not enough insulin somewhere, right? Because there's a huge swing, right? And then Hills come back down and to 80 or 90, usually within three hours if you know if he's gone up to the 150s. And sometimes he'll even go from, you know, the 70s up to 180 and then come back down. So I wonder if it's an insulin thing now that I'm seeing this out loud.

Scott Benner 14:02
Okay, well, hold on. So I got what you're saying. Let me say this, because I'm, I guess I'm fun being honest. It's not going to be completely like a phone call because I am cognizant that other people are going to listen. Right? So there are two types of people who have the nerve to reach out to me. Yeah, and the nerve because obviously this is not something I do for a living like you're not paying me and you know, so it feels like an intrusion. So there are two types of people I've got a broken down I know for sure. It is. Either someone who is in such a bad situation, that they're willing to talk to a stranger on the phone because they think that they're about to die or kill somebody. Okay? Like No kidding, right? It's that bad of a situation. Or, or it's not like me who's neurotic? It's a type a mom who gets on the phone and is like, Hey, I got a real shit show. Over here, Mike. See is 6.1 and sometimes his blood sugar 65. And we got to fix this. And, and when they start talking, I start thinking, but you're doing a really good job. And then, then we're gonna find out as we talked about it, do you know you're doing a good job? Or do you not know?

Amanda 15:20
So I think that's part of the problem. I think I know, for the most part that I'm doing a good job, but I feel like, you know, when I look on social media and things like that there are people who don't go above 120 with their posts, meal spikes, and then they just feel like it's possible for it to be better

Scott Benner 15:38
it is. And you'll find it I imagine. I mean, if you don't mind it, who's going to write and? And I don't mean because you love him and you're his mom. I mean, cuz you're mentally unstable. And yeah. But in a lovely way, so it's not a judgment. It's like you're not out like trying to kill Batman. You know what I mean? Like, there's no yeah, you're fine. No, yeah.

Amanda 16:01
Yeah. I'm all in. I'm mildly competitive, which I think is part of

Scott Benner 16:07
how clean is your toilet? Tell me right now.

Amanda 16:09
It's pretty clean.

Scott Benner 16:15
You ever seen? I can't believe I'm saying this on the podcast. But if you ever seen a pubic hair around the toilet rim and actually gotten angry at your husband then you're not doing terrible. You're doing great.

Amanda 16:27
No, but I'm not going to answer why I haven't seen it.

Scott Benner 16:30
God is your husband shaved? I don't want to talk about this right now. And you just say yes. How does he stay warm? In the Midwest? Listen,

Amanda 16:36
I work in health care. Like no, I nothing bothers me.

Scott Benner 16:39
Can you believe you just said that? It's fine. It's fine. I mean, in the back of my head, there was this little voice that just said, this is why this podcast is so good. Because we're all so comfortable together that you and I complete strangers. We are 15 minutes into our conversation.

Amanda 16:58
Yeah. Talking about my husband. tearless. Yeah.

Scott Benner 17:02
Wow. Do you think what? Oh, my god, does he do it? Because it makes it look bigger? Would it? Why is he doing

Amanda 17:07
it? I don't know. You know, I don't know.

Scott Benner 17:09
I've never really asked him that. You got it. It's not for you.

Amanda 17:13
I have no idea. I don't really I kind of do care. Actually. I prefer it.

Scott Benner 17:22
I don't even care if your kids healthy anymore. Let's keep talking. I'm just kidding. Alright, so my first thought when you tell me that you're doing a Pre-Bolus that's creating a 60. Then you're finding 150. And it's taking two hours to go back to level that my first thought is not terrible. And it's getting back to level without going low. It's getting back to level without another Bolus.

Amanda 17:49
Most I mean, sometimes that happens, sometimes it doesn't. Sometimes it has to have another bullet. Sometimes he does go low, but I catch it before it gets low. You know what I mean?

Scott Benner 17:57
So then I kind of drift back to the things he's eating then. And I'm not telling you to change them. I'm telling you that right. You know, if you're if you're going to have hotdog, for example, Have you have you put some effort in defining a bun that doesn't impact as hard? Like that's, I know, a stupid thing to say. But their breads hit differently. And if you try a couple of different like I would I would say to you, are you using bread that has no high fructose corn syrup in it?

Amanda 18:30
I honestly haven't looked. I don't know. I use wheat. Whole wheat bread.

Scott Benner 18:34
Yeah. Oh, there's another one. I'd stopped doing that two. Oh, come on whole wheat bread people think of is healthier. Yeah, but I think it hits harder than white bread. If the white bread doesn't have high fructose corn syrup in it, and it's made in a kind of certain way. I know. That's weird. And I'm not saying you can't find a wheat bread that isn't. doesn't do that. Right. But you got to look a little bit. Yep. All right. So so think about that. If you could take the impact of 30 points out of the role, then then you've got that one. Now you're 120 Maybe and you come back and maybe maybe you'll find out even then at that meal doesn't need quite as much insulin. Okay, it might not even need quite as long of a Pre-Bolus. Because, you know, I I know I've said it enough times, but it definitely fits right here. We do not think about the food enough. Right? Like they and it's I really do believe it's because when your doctor talks about it, they tell you like Be careful the glycemic index and the glycemic load of your foods here. Like I didn't listen in science, Betty. You know, why you Yes, glycaemic to me, but I mean, the quality of the foods is a big deal. And it's going to be harder, like processed food. Food that has sugar in it for no real reason other than it tastes good. Like that kind of stuff is going to is going to get in your way. Yes, but taking that out of it for a second and just thinking about the situation you're putting in insulin early enough to see a pretty significant decline as a Pre-Bolus. Right. And then how long after that is the 150 happen? After every addition? I

Amanda 20:20
would say from 45 minutes to an hour.

Scott Benner 20:25
It's always 45 minutes. Okay.

Amanda 20:28
I know. Yeah, it kind of it just starts to kind of slowly climb. It's not like a straight up rapid up, but it's a slow climb up to the 150. Is and then it's, it looks like a mountain. Do you know what I mean?

Scott Benner 20:40
Yeah. So how focused Are you on this? Like, if I said to you, you could Pre-Bolus What do we say is Basal was point two, five, you can Pre-Bolus the meal, and then take out. I don't know take out a quarter of a unit from the Bolus. And at the same time, you Pre-Bolus double his basil for an hour, that maybe you could shift some of the insulin around to try to impact your situation. Now this could go wrong. I might be wrong about this. Sure. Right. Say that one more time for me. Well, what if what if you like, let's just do round numbers and say that the hot dog launch that we're talking about here is for is four units. Okay? Am I way off on that? Or Is that about right now? Okay. And then make it 3.75 And then do a Temp Basal increase for an hour except you're on control IQ.

Amanda 21:34
And then I know so what I've been doing because of the control IQ is I will add in some more carbs and I'll extend the Bolus

Scott Benner 21:50
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add in more carbs and extend the Bolus so that

Amanda 24:36
he's getting more insulin.

Scott Benner 24:38
It's your line nice,

Amanda 24:39
extend the Bolus out

Scott Benner 24:41
lying about the carbs extending the boss explain to me the extended Bolus no control IQ you can tell it.

Amanda 24:47
So with control IQ because of the way that control IQ works, it's gonna change the Basal for me if it needs to. So rather than and I could if I wanted to I can turn off control IQ and I could mess with the basil on my own like I can, I can do a Temp Basal if I wanted to. But when he's at school, I don't like to turn it off. So I generally don't because I want it to catch things, especially if it's going high or low when he's at school. So to kind of get around that I will. So for a lot of his meals, if they have high fat in them, so typically over 20 grams of fat, I will take half of those fat grams and I'll add them into the carb Bolus. And then I extend the Bolus to cover the fat rise that's going to happen later. More than likely or like for example with the mac and cheese because I know that that's a slower digesting food. I will add in a few more carbs and what it really is, and I'll extend out the Bolus so you can put in you know, 80% up front 20% over two hours.

Scott Benner 25:51
80% up front 20% over two hours, so you can hold on a second. My daughter's texted me about her and son Kimmy. Yeah, but I'm telling her about an override for her loop. Trying to decide what I just she's like, You didn't finish the thought override in the end, forever 150%.

I didn't say forever. I didn't tell her for how long to do it. Arden has what she's calling college flu. Even though she's even though she's in so she tells me last night like very grown up in the kitchen. She's like, I have the college flu. And I was like, Oh, what is that? And she said I have a cough we all have it because we got back together and we haven't been together for so long. The whole schools coughing unless Oh, great. She goes I don't shoot. I don't have COVID I would no of course not. You'd be the best person to check with on that not a physician or a test or something like that. And then my son told me the same thing. They went back to college he said everybody's coughing he's like it's just not it's not going away. How's it go? Great. Okay, excellent. Yay. Perfect. But her insulin needs on whatever this is are unlike anything that I've seen in a while because really Arden doesn't get high with in with illness she gets lower. For you. Usually an illness for Arden's like a good is good news. We get the Turner basil down, and she just rolls through it. But she had she's been having like, Oh, my God, I've had her basil as high as like, two 2.4 an hour at time at times during this trying to keep it together. Yeah, the Bolus don't seem to change much for the food, like her insulin to carb ratio is still the same. Yeah, so fine.

Amanda 27:50
So when she has things like that happen, like if she starts to kind of creep up and gets higher, how long do you watch it before you start it? Like especially if you're doubling her Basal? How long? Are you watching it before you keep going up?

Scott Benner 28:03
Amanda? That's classic newbie question. Very good. This is one of the favorites. Scott, please tell me how long I should wait before I do this.

Amanda 28:10
I mean, I know that it's different for everybody. But if I just have a generalization.

Scott Benner 28:16
I love watching your brain torture, man. So honest answer is it's one of those things you figure out over time not to hate that answer. Okay. It's one of those things that you'll just learn to see. And then it just, it's there then, and you just go right, so I noticed her cough two nights ago, when I noticed her cough, it made me go look at her, I pulled up her 24 hour graph. And then I saw I noticed that we had you know, like one of those meal things where you think, Oh, I missed the meal. And it just gets high and it won't come down like in UFC that we were fighting with it. I got it back. But then as soon as I had it back down, it felt like it wanted to go up again. When that happened, we changed our sight because it was like two and a half days into the pump. I thought that might just be a bad sight. And then we got it level with some boluses and then that started drifting up again. And then as soon as that happened, I increased her Basal. Okay, that makes sense. Yeah, that's how I did it now. Okay, you know, 10 years ago, my answer would have been it took me six days. I thought she was right. Or blood sugar was 250 most of the time and because why? Right? Because the fear is that you're gonna like Jack in all this extra insulin and then look up three hours from now and the kids blood sugar is gonna be 40 and falling and it's gonna need 70 carbs to stop it like That's right, right? Yeah. I don't know. I just know what it looks like now. Okay, you know, and I and I did some like, you know, some testing with changing the site and then you got to give yourself some time because a new site doesn't work like magic right away. Last night, we had it. I thought we had it. And I, you know, I had her pretty, you know, everything was turned off pretty much. And a friend of hers came over, I'm guessing so they could spread around the college flew or whatever it is. Right and. And she's like, can you make us popcorn? And I was like, oh, okay, sure. So I just, I finished what I was doing. I made popcorn. And then I looked at her blood sugar because popcorns not hard on her. And I was gonna just text her and say, Hey, Bolus, and her blood sugar was like, 210 Straight up, and it just, it's like, 20 minutes before it just started jumping up. And I was like, I texted her. I said, Hey, what did you just eat? She goes, I haven't eaten anything in hours. I was like, okay, so I knew that was this. So I changed the strength of her insulin. I mean, she's looping. So I mean, for people listening, like I basically did a Basal increase of like, 100%, like, you know, instead of 1.1, an hour is 2.2 an hour. I Bolus the number. And I shut off the algorithm. So it couldn't take away her Basal. Okay, because I knew I was in a very specific situation, right? We crushed it again. And as soon as they got back down, and that override of basil ended, it tried to try to go right back up again. So overnight, I think she had basically like one and a half times her normal Basal rate. And still she woke up at like one ad this morning. So the I've been crushing the one ad for the last hour and a half. Interesting. Yeah. And now I have it. I've I think so let me look. Why 135 Diagonal down. Nice. Yeah. So that's why I just changed her override. Around I had a 200%. Now I moved it back to like, 150%. Okay, again, think of that as like Basal increase 150%. Also, it impacts corrections to but when it asked for. So you turn the loop up to 100%. And now if it if it in a normal situation in these, in whatever situation you're in, it wants to units as a correction, it'll tell you once four units because it wants twice as much as so when it told us like about an hour ago. She's like, hey, this thing wants me to Bolus like 4.8 units as like just due to Oh, yeah. Okay, because we had done a little earlier, and four units would have been way too much. And by the way, yeah, even if it wouldn't have been. She's at school, I'm not going to give her five units of insulin to correct at 180 When she's not with us. Like the next thing I said to her was, do you have juice with you? And she's like, Yes, I was like, alright, still do too. Let's watch it for 45 minutes, I figured I'd be talking to you. I could keep my eye on it. This was about the time. If she wasn't coming down right now I would have put the other two units in. So it's an interesting look into that the algorithm, whether it's Looper control IQ, or I imagine on the pod five and the future, whatever it is that you know, Medtronic is going to do.

It only knows what it knows. It can't understand the other impacts, for instance, that you buy wheat bread with high fructose corn syrup. If you do you know, or that Arden's having an illness that's impacting her Basal needs really drastically, right? It doesn't know that. It just sees it sees the settings you put in, and what the blood sugar is, and whatever, however, it's interpreting the trend. Right, right. So it's a stupid smart system. Angry? Yeah. Yeah, with this meal thing that's happening to you. Have you ever shut off the control like you and tried the same meal like manually?

Amanda 33:59
No, I have shut off the control IQ a couple of times, not necessarily for the same meal, just to kind of play around with it and see what happens when I do that and see if I can manage it better. I think the issue with the tandem in particular is that it's connected to him. And so anytime I need to make a change to his insulin needs, whether you know if I have to Bolus or change his basil or whatever, I need to go to him and take the pump from him to put in the setting changes or you know, the correction or whatever it is. And he gets annoyed by that. And so I think that I kind of back off more than I would like to because I don't want to drive him crazy.

Scott Benner 34:39
Have you ever tried my tactic? When they look annoyed? Just look at him and go Oh, shut up.

Amanda 34:46
He would probably so he and I are that we're cut from the same cloth for sure. Like we are exactly the same person. And so we butt heads a lot and so

Scott Benner 34:55
Oh fun.

Unknown Speaker 34:56
I don't think that would end well.

Scott Benner 34:57
You know when that's gonna get better in like a year. halfway he has testosterone.

Amanda 35:02
Yeah, luckily, I work out a lot. So I think I can take him,

Scott Benner 35:05
but you might have to work out to get your frustration out. Yeah. So here's my next question. Away from an active Bolus away from food. So food hasn't been in a system for three, four hours. Where does Where does his blood sugar sit stable or does it not?

Amanda 35:24
No, it totally has. Basil is really good. I've got that nailed down. So like last night, he was one of the five.

Scott Benner 35:32
One of the five overnight, huh? Okay. Does he ever sit lower overnight? Yes,

Amanda 35:38
he does. But the dumb control IQ kind of brings him up sometimes. So if it goes below, one 12.5 it'll shut off and then it kind of bumps it back up. So it's like a love hate with the control IQ. I haven't totally figured out how to work with it. I think I'm still working against it for

Scott Benner 35:55
sure. Because it's getting it's targeting like that. 112 and a half.

Amanda 35:58
Yeah, yeah. Yeah. So I would prefer I mean, I do get him sometimes to right around 80 or 90, and that's where I would prefer him to be but I'm still trying to, like I said, figure out how to work with control like you instead of against it. Totally.

Scott Benner 36:13
I'm just wondering, like, because Because point two. I mean, it's obviously honeymooning. Yes. Because point two five for 80 pounds is low. Right. Right. So

Amanda 36:26
yeah, he's getting like 70% of his insulin is Bolus in like 25% is Basil. Something like that. Okay.

Scott Benner 36:35
Yeah, that's, I mean, I know there's some people who like use that percentage like, like gospel, and some people don't care about it as much, but that's pretty wack. Like, as far as right. Yeah. Do you see any signs of attending? Have you ever had a day where his pancreas wasn't helping? No, not yet.

Amanda 36:52
Which is kind of annoying. And it's kind of all over the place to like, it'll help out more, some weeks and others and it's hit it like it. It's driving me crazy, because I swear, I really honestly feel like I'm changing his basil almost every week. Definitely. It changes between school and the weekend always buy quite a lot. I feel like I mean, he can go down to four units of basil on the weekend, compared to the six that he's been getting recently. Anyway, when he's at school more sometimes he goes up to eight units when he's in school. It just it's like all over the place. So

Scott Benner 37:22
he's more active on the weekends. For sure. more sedentary during school? For sure. Okay, and you said driving me crazy. But you've misspoke. You should have said crazier. Yes, that's true. That's fine. distinction I make with my wife. Sometimes she's like, this is making me crazy. And we all like crazier. Let's not try to let's not try to take credit for a baseline of zero because it doesn't really well, okay. So you see, you see that when he's more active, and he's less Basal when he's less active, excuse me when he's more activities less Basal when he's like that. But that makes sense. less active, he needs more basil. His Basil is definitely low for his weight. So I completely agree, obviously with that, but does the I wonder how much it's being helped with the meals as well like, because now you're trying to make adjustments. So here's the thing, right? When you wait for people who don't understand when you Bolus with an algorithm, most of them, that's fine. Most of them will take when you're posting for food with an algorithm, the algorithm has you put in all of the insulin that it needs for the for the meal, meaning the impact of the food, but it's also kind of covering the Basal need to. So loop, for instance, you put it in light of Arden has 40 carbs, we've almost 40 carbs, if her blood sugars already at then, prior to this meal, it's been achieving the 80 by keeping her Bazelon. As soon as the food goes in, excuse me, as soon as the Bolus for the food goes in. Oftentimes, the algorithm takes the Basal insulin away, because it's trying to work with just the Basal and control like you does that similarly, is that right? Yes, correct. So my point about us specifically is when it's doing that, it's only taking point two five away. Right? So it's not like in Arden situation where her Basal goes away. I lose a unit of insulin an hour. Right, right. If you're using you're losing point two, five. So the question would be, obviously the next step you tried was adding a little extra carbs lying about the carbs. If it's 20 carbs, you're telling it it's a little more so that he gets that extra insulin that's being taken away by the Basal but that doesn't help either. Right.

Amanda 40:01
No, I mean, sometimes it does. But most of the time, I would say No, it'll he still gets that, you know, what I would say as a spike up even though I know it's not like a crazy spike, but he gets that spike up still and then okay, sometimes even he goes low afterwards, and I have to catch it with food before he actually gets low cuz I can see it coming.

Scott Benner 40:22
So when you when you fake carb, you can get low afterwards.

Amanda 40:27
Say that again? When I say carb, I

Scott Benner 40:29
can let you he can get low afterwards. Sometimes Yeah, yeah. So I bet if you took if you step step back, you would notice that the he's getting low afterwards when he's eating. But I'm just gonna say better because I don't have another word better food, like, right? Less preservatives like etc, etc, whatever. And so that's an that's a situation where you're lying to the algorithm helps you up front hurts you on the back end, because on the back end, it expects her to be carbs there that aren't there. And that's why you get slow.

Amanda 41:00
Do you? You don't think that it's an insulin issue like a human long issue.

Scott Benner 41:07
I think the fake carbon with an algorithm is a good way to be low later. Yeah. Unless you're, you know, he's having macaroni and cheese with, you know, those popcorn or things that I mentioned earlier, that I think you should probably just open the humor log and sprinkle it on his head. So just like a flower just here, buddy, we need extra Yes. But with the regular meal though. Fake carbs with an algorithm with a regular meal is a is a good way to be low later, because it thinks there's more carbs in there than there is it's still pushing at it. And so you're doing it to trick it into giving it more insulin to overcome the the Basal being taken away, and it works in the beginning. And then at the end, there's nothing to prop up the insulin and boom, you go down. Now you could I mean, if you're comfortable with giving a little more carbs later for that, then it's not really a problem. It's a viable solution. But it's not. I mean, I don't know how long you could do that without making you crazy. Or you also don't want to put on weight from extra food that he doesn't want to be eating.

Amanda 42:15
You know, and I Yeah, and I hate that he does as much sugar as he does some days to try to catch lows. Right,

Scott Benner 42:22
right. So okay, so what are some of the options? I see the one out a one thing that I have available to me with loop that you don't is I get to tell the loop how long I think the food's gonna impact for. So when Arden has macaroni and cheese, you can put an impact time have five or six hours, which gives the loop the expectation that the food is going to be in there that time and it will keep kind of pressing out of them. Because yeah, you can't do that with control IQ. You also can't readdress a Bolus was control IQ. Right? You can't like I don't know, say, This meal is 25 carbs at eight o'clock in the morning at 830. And at 830. realize, oh, I should have said 30. You can't go back and change the 25 to 30. You correct? Right? You could put in a new 20 new five, but then that messes up the algorithms understanding of the timing of the food then correct? What happens when you don't? Pre-Bolus as long? Does he just get higher?

Amanda 43:25
Um it's hard to answer. Not usually because I know if I know he's not going to get along Pre-Bolus, then I add more insulin into catch what I think is going to get high.

Scott Benner 43:40
I say Oh, so you don't know what will happen because you're already trying to

Amanda 43:44
preemptively assuming that it's going to and so I'll add in more insulin to try to stop that from happening. If I know that he's not going to get a Pre-Bolus or at least as long as I would like for him

Scott Benner 43:53
to Are there any meals where he doesn't spike and he doesn't get low later.

Amanda 44:00
I mean, yeah, they do happen. But it's he doesn't eat the same thing twice, ever. I mean, he eats. He eats the same, I don't know, five, six foods, but he pairs them with different things every time. So then they impact differently based on what he pairs them with. I feel like so I can't get a real good understanding of one meal to the next because of that.

Scott Benner 44:22
You're the first mother 11 year old to complain that their kid has a variety of food choices.

Amanda 44:27
I know I know. I know.

Scott Benner 44:31
I understand God, I'm sorry.

Amanda 44:33
No, you're fine. I don't remember what I was gonna say it wasn't anything important. Probably

Scott Benner 44:37
not. I'm just kidding. Okay, so is this the time where I tell you that for a honeymooning, 11 year old who's had diabetes for four months. This is going really well. What's this a one seat Hold on? Let me guess is a one 110 Most the time doesn't really spike over 150 months. Maybe 180 Once in a while sees lows infrequently, can get as low as 65. I'm thinking, I'm thinking Hold on, hold on, I want to get a really good guess here wins last time you had to say once a

Amanda 45:17
little more than three months ago, he actually goes, I want to say next week.

Scott Benner 45:21
Oh, you don't really have one right now what is Dexcom? Now what is clarity? X calm says that it's going to be 6.10 That's my guess. Damn, I should have said it. Damn it. Damn, damn, damn Damn. Yes. So what was he when he was diagnosed, they didn't

Amanda 45:36
draw one in the ER, which really annoyed me. So he went back for a follow up two months later, and two months in, he was 8.8. So he had two months of good control plus one month of crazy numbers before diagnosis in that point.

Scott Benner 45:50
So man, to be clear, your son's had diabetes for four months, he's 11 years old, eats a bunch of different foods is incredibly active only gets into the 50s maybe once or twice a week and is a one C 6.1. Yeah, what made your comment again?

Amanda 46:05
Oh, man, I know. See, it's because I feel like I can do better with the hosts meal spikes I worked with. I've worked with a company that you talk about a lot. And I was kind of frustrated because I felt like I have a lot of knowledge coming into this just because of my background, not with type one, but just in general medical knowledge and nutritional knowledge coming coming into this. And so I felt like a lot of the education was very surface level and beginner which I do need to have reminders of those things. But I really wanted to dive in and really learn what I can do with control IQ specifically, and how I can work with it better. And I didn't feel like I got that. And so I really just I know that I can keep those piecemeal spikes from going from like, it's just the the range of the jump, right? So if he goes down with the Pre-Bolus to like 70, and he's jumping all the way to 151 60, then I feel like that's telling me that something's off there. Even though it's not a bad number necessarily to jump, you know, I understand 7080 points. That to me means that there's not enough insulin or something, something's off.

Scott Benner 47:18
I didn't mean for my question to throw you into a minor breakdown. I'm sorry. No. Does your husband ever asked you to calm down? And does that make you mad?

I try so hard not to tell Kelly to calm down. I know that there's no value in it for me or for her. But sometimes I just go.

Amanda 47:47
I know. And my type one is exactly like me. He is like a very, he's a an A Oh gosh, a sticky note. Like he writes reminders to himself. He's a he's a task oriented kid. He he's very much like me. And he's very passionate to a fault. So if there's something that he doesn't like, oh, man, yeah, you're gonna have a hard time convincing him otherwise, I

Scott Benner 48:09
have a wife like you and a son. Like you're still see. It's great to

Amanda 48:14
challenge make a lot of amazing adults someday, but right now I tell you what,

Scott Benner 48:17
they'll make great adults make a bunch of money and be dead when they're in their mid 50s from some crazy heart attack. That's accurate. Yeah. So okay, so we want to be able to Joking aside to help you feel calmer, and and help this go more smoothly.

Amanda 48:33
Or just let me know that this is not I guess that's the other part of it. Like, I don't know what normal is. I don't know what to expect. Because obviously, we're brand new at this. So I don't know, what do most people's graphs look like? Or what is what is what should the expectation be when he's honeymooning? I don't know. I'm just trying to make it the best that I can so that he doesn't have complications.

Scott Benner 48:53
Yeah, I hear you that that all makes sense. Um, I would tell you that if you're if you're eating foods that are difficult to manage, and he's honeymooning, then you don't have I don't, I don't dislike 150 for an hour after, you know, an hour after a meal that comes back down and doesn't get low. Like that feels okay to me, like, Could you put in a tiny bit more insulin? Sure. So instead of fate carving, could you have I don't know how that pump is set up? Like could you have a carb ratio? That's a little Meteor for more carbee foods and carb ratio that's a little lighter for simpler. carbohydrate. Yeah,

Amanda 49:37
yeah, you can put in different different profiles in the pump. I think you can have up to I don't know six or 10 or something,

Scott Benner 49:43
because that's what I'm thinking like, maybe you need to profile that's like, you know, sugar depth popcorn and you need a profile. It's like normal. And that way, you'll be more you won't have to lie about the carbs. You can uh, you can be more aggressive with the meal insulin and maybe that would stop the spike. little bit and keep the low way. Okay, that makes sense. Do you sleep mode overnight?

Amanda 50:06
Yeah, no, I don't.

Scott Benner 50:08
I've tried it over.

Amanda 50:09
I have and I didn't like it because it kept me too high.

Scott Benner 50:13
Oh, it made him higher. Yeah, okay.

Amanda 50:17
But I only tried it for, I don't know, two days or something like that. And then I was like, I don't want he was riding right around 120 I want to say, which again, not bad, but I was doing better on MDI, keeping him lower prior to change because I didn't sleep mood, right when I change to the pump. Yeah. And I was doing better with MDI, keeping him lower. So I knew that I could, and I didn't like him stand the 120. So it could have totally just been it was brand new, the pumping to us, it could have been other settings that were you know, I just wasn't, I don't know, maybe I need to go back to

Scott Benner 50:45
it. What's this? What's this meal ratio? Like? What's his insulin to?

Amanda 50:50
See, he gets insulin to carb. So it's he has 123456 Different insulin, the carbs based on the time of the day and the way that it's set up in his profile. So like for breakfast, he's 20 grams per unit. Lunch is the same at dinnertime. He's 21. And at 9pm, he goes to 19.

Scott Benner 51:15
Is there really any difference between 19 and 21? Probably not. No. I'm not laughing at you. I just I love watching people overthink this stuff. Tell me I know, there are people I've been like, tell me about your Basal rate Cisco. Okay. Well, in the morning, it's more aggressive. Point three from 7am to 9:30am. And then it's point three, five for an hour. And then point two for this bottom. i Oh, God. Just Just make it like point two, five the whole day and like, let's see what happens. You know, you can't get caught in trying to outsmart what you think you've seen in the past. Because especially with a with a honeymoon, most of what you've seen isn't real. Like, is it real? I know. It's not what it's going to be later. But it is what it is right now. So I mean, you're that's fine. I mean, point two 1.9 a 19. And 21. I guess whatever. Right. to freak you out. Arden's insulin to carb ratio is one unit per four and a half carbs. We're on it. So yeah, get ready.

Amanda 52:24
I know. Well, I was actually going to ask you that. What does that look like when they go from well did art in how much of the honeymoon,

Scott Benner 52:31
artist honeymoon came months into her diagnosis. And it lasted for two days and then went away? For two days of art and Denita and so on, like months into her diagnosis? Hmm. So interesting. Yeah. Who knows? So

Amanda 52:50
then what does it look like when they when their pancreas totally isn't helping you at all? Because then it's not helped. Because right now, I think his pancreas probably is helping to prevent some lows.

Scott Benner 52:59
Well, you're not using as much you're not using as much manmade insulin, which is probably limiting the lows. Yeah, like this. I'm like, this is like, this is going to get worse before it gets better at some point. Yeah, yeah. You know what I mean? But you'll Yeah, but I want to go back for a minute. Well, let me answer your question. First. I want to say about Arden, Arden got diabetes in 2006. We were using a meter that looked like it came out of a bubblegum, machine and needles. Yeah. So how long did she have a honeymoon? I don't know. But I know for sure that months into it. There were two days where she didn't need insulin. True. Okay. That's all I know. I don't think you're crazy. I think that yeah, I think you're not a clinical diagnosis. But you're welcome. And I think this, I've spoken to a lot of people, and you have all the tools you need to do this. Yeah. The one thing you're missing is consistency from the pancreas, and time to see things in a bigger way. Mm hmm. So what most people have, who succeed is the desire to do it. You have that? Okay. So you want to do it, you want to do a good job, you want to be involved in it. So that's that the the key here would be not to burn yourself out before you get an opportunity to really get in the game. Mm hmm. For now, I would tell you this is probably you're doing great. I mean, you can keep like tinkering with it and everything but just just know that. I don't know. Like, this is the part of the movie where the boats leaking slowly and you're not in the water yet, but save your energy because we're going to be fighting the shark pretty soon. Okay, like don't panic, don't panic in the boat. Let's save that energy for the fight. Because there's going to be a moment where his his needs are going to increase. And that's where you're going to have to be flexible in a way that I described with Arden's illness because basically Arden illness mimics the end of a honeymoon, we have this great degree we have this Basal need that works we have, everything we know that works is here, and then boom, snap of the fingers. It's wrong. And it's not wrong by a little bit. It's not that our Basal needs to go from, you know, point nine, five to one, it's her her Basal need went from 1.1 to two. And it'll end it's going to stop again, by the way, and I'm going to have to adjust off of that at the same time. So that that's what it's going to be like when the honeymoon like hopefully, look, if you get lucky, it'll be gradual, and you can just adjust as you go and it'll just level. But he could just wake up one day and need more insulin. Right, it'll take you a little while

Amanda 55:43
you have to start all over with figuring out how food impacts and all of that.

Scott Benner 55:48
I think the timing of your meal, insulin will be pretty similar. I think his carb ratio will change a little bit not a ton, but his Basil is Basil is gonna change a lot. Okay, so I mean, this is not I you know, I said this enough on the podcast that I this is not technical. It's not mathematical. It's not out of a book anywhere. But kids who are not who are prepubescent. I kind of think of is like point one per hour per 10 pounds. So it wouldn't be crazy. If you eventually found them at point six an hour point seven, that kind of stuff. Okay, you know. And that's where that's the biggest hurdle to me is that people adjust so slowly. So your point two, five, so when his Basal needs go up, I guarantee you, you're gonna make him point three. Yeah, and you're gonna end you're gonna feel like, you're about to kill him, you're gonna be like, 100 to go 2.3 then nothing's gonna change.

Amanda 56:47
When he was sick with that upper respiratory thing for I mean, it was a little more than a week long that I had to change his he went up to point six at night. Yeah,

Scott Benner 56:55
that makes sense to me. So, so just when that time comes, just, you know, it's a good time to find your balls, you know? Yeah, and, and, or otherwise, you're gonna spend days and days and days going from point two, five 2.3 to point three, five, and then you know, everything else is going to be bonkers. Nothing's gonna make sense. And we're not gonna sleep and five days into it, you're going to be running your head into a wall. Right? And then calling and calling a perfect stranger on the phone for help. Gosh, I know, too bad.

Amanda 57:25
So tell me this with Arden? How often are you like texting with her at school to make little micro changes to her insulin, or I mean, I know probably now it's not quite as much as it was when you were figuring all of this stuff out. But that's the other sort of hesitation that I have is that I don't want to interrupt him. His thought process when he's in school a million times to get him to bump a number down or whatever the case may be. So I'll let them ride a little bit higher when he's at school, but I don't know. Like, what do you typically do? or what have you done? Or what did you do when she was younger?

Scott Benner 58:00
Sure. Sure. So, uh, so we went through a couple of iterations. When she was younger, younger, she was using just you know what, on the pod and she would, she'd go to the nurse. You know, when she was in second grade? She'd go to the nurse's office send me I couldn't see your blood sugar back then. Like there was no share feature in in Dexcom, even when she had it. But yeah, they they give me the number they test her to I'd tell them how much insulin to put in, they'd put it in. She'd come back number of hours later and test again. And that was before. That's before CGM. Once CGM came, then okay, now you know, they could see that we worked off of that and then eventually share showed up. Gosh, do you know that I put I made the phone company or the my internet provider somebody they used to make these like Wi Fi repeaters or something like that, that were of cellular. I made them install that in her classroom for two years. Oh, nice. We Oh, so on the pod share

Amanda 59:05
you taught you're telling me that I'm the crazy one.

Scott Benner 59:07
Hey, do you like the podcast? I do that leave me alone. Okay, Jesus, God be nice. I'm already married. Amanda. I don't need this from you. Okay. I get to teach you you're on the podcast. You'll be nice to me. I'm the host. That's how all this works. Now. I'm just kidding. I'm sorry. But we did that so the back then so Dexcom share had a way to get out because the school didn't have Wi Fi right. And then when that no longer became necessary, etc, etc. At a point you're really talking about is the point where your son's out right now he's got a Dexcom it's a cheese six you can see his blood sugar's in real time. He's wearing an algorithm at that point and Arden's life. There's it goes in spurts. There are times when it just you don't have to talk to her at all. You know, and then there's times where things go wrong or you know, you're heading out the door for school when you realize oh, we should change that pump last night. You know, like then that needs Some more. There have been times where I've, you know, I've talked to her every day before gym class. And now I don't really know when she goes to gym to be perfectly honest. Yeah, but so you know, the thing you need most. It sounds so counterintuitive, but you need the honeymoon to end so that there's stability.

Amanda 1:00:20
I agree. Yes.

Scott Benner 1:00:22
And then you'll start seeing things that make sense. I mean, you know, for diabetes, right, and you'll be able to make more meaningful decisions. But for a kid who's in this situation, you're doing really well, exceptionally well. And I find that nobody tells anybody that and appreciate it. Yeah, no, no, yeah, really great. I'm like, what are we talking about here? Most spikes only to 150, sometimes 180. They come back down on their own half the time if they don't you know how to correct them. Seeing lows maybe around us activity more than anything, but we're calling low 65, which there'll be a day where you won't think of as a momentary 65 is a problem. I don't want his blood sugar in the 50s anymore than you do. And so, but that's only happening here and there. He's got diabetes, so Right. Might think that's gonna happen now. Does he drift into the 50s? Or is he falling through the 50s? It sounds like he's drifting into the 50s.

Amanda 1:01:19
Most of the time drifting. Yes. Occasionally falling.

Scott Benner 1:01:21
So. So what that mostly sounds like is that it happens and excuse me. This is it. The college flu, I have the college flu. Oh, talking so much. My throat got dry. I'm on this intermittent fasting, which by the way, everyone should do just saying. But I don't drink anything with flavor in it before my fasting window opens. Oh, okay. So the water's not quite doing it for me this morning. Oh, I wish I had something else. I could do a black tea, but I didn't have time. It's not your how's it going? The

Amanda 1:02:00
intermittent fasting.

Scott Benner 1:02:01
I think it's saving my life. Oh, well. Good. I think it's amazing. I think that I think everyone should eat in at least an eight hour window during the day. Yes. It's It's really wonderful. Like, just I wish I knew about it sooner. Awesome. Anyway, have a great episode about that. Oh, okay, hold on a second. Let's pimp the episode inside of the inside of your episode. Do it. I'm pulling up the the episode number right now. It's number 516. How we eat intermittent fasting. Okay, it's with a woman named Jen Stevens. She's got this. She writes intermittent fasting books and has a podcast about it. Interesting. Very cool. So basically, you know, for a person who doesn't have diabetes, you're by eating inside of this window. You're significantly lessening your insulin needs in the other window. Right. And that is just huge for a lot of things. And I came to realize while I was talking to her, the Artem basically does this too, because she's not a breakfast person. Okay, yeah, it's so Arden almost is like a 12 hour off eater. Like she doesn't, you know, she doesn't eat from later at night. I mean, 1011 o'clock, usually, to almost noon the next day. Wow. And that's how we know how good her her settings are. Because she's sure she's super stable, and her algorithms not going crazy most of the time. Although, again, for people like who are considering this stuff for the future. On days, when it goes wonky, the algorithm gets ahead of it. And you know, you get to live a normal, a more normal life where you're not so good. Yeah, worrying all the time about am I getting high? Am I getting low? Do I have to bump do I have to nudge now back to your original question when we were bumping and nudging? You know, how often did I talk to her? I don't know. If four, four times a day maybe it was like Hey, Bolus point two five Hey, set a Temp Basal for this. About like that. I was rudimentary, rudimentary. Oh, damn it, I went down. So I know rudimentary is the word but how do I add a y to it? Or is that not? Oh, I was really good. That's a word not a word. I was rent. I was doing a simple version of, of an algorithm. So I was Yeah, I was being a simple version of an algorithm. Take it away here. Put it back here. That's what you're all doing. When you're bumping and nudging. You're just you're being your own algorithm. A little bit.

Amanda 1:04:37
Right. So, so good. I mean, how neurotic were you with it? Like would you let her ride higher in the 150s 160s? Before you bothered her to have her do something about it? Or were you trying

Scott Benner 1:04:46
to I mean, if you're looking for my specific ideas, I treat blood sugars over 120 that I think aren't going to go back on their own and I would give her her carbs at school under 80 At home, okay, at home, I wouldn't do it until, you know, right? It's 70 probably

Amanda 1:05:05
okay. And you've always done that with her when she was younger, too.

Scott Benner 1:05:09
I mean, your years were kind of your parameters in your head. You're confusing me now with me then. Like the technology, the technology didn't exist. And my thought process didn't exist. So back then I just ran around, like with my hair on fire.

Amanda 1:05:24
Right? When she was like, 1112, she had technology, didn't she?

Scott Benner 1:05:27
Yeah. Okay. So when she was 11, and 12? Yeah, I mean, once. So what I find is to broaden the conversation. Yeah, once you've noticed what stability looks like, and you can achieve it on purpose, then a 70 doesn't scare me. If it's falling, I obviously would feel differently about it. But sure, a stable 70 Isn't by chance. When that happens when your settings are good, and you're making purposeful boluses you understand the impacts of different foods, then 70 might be a huge win. Like I wouldn't I wouldn't correct a stable 70. Now, you know, back then what I have you maybe but with like, a gummy bear or two? like I would in my mind, I would just try to make it 75. Now, if it kept trying to fall, then that's different. Right, then I might be more aggressive about it. It's super interesting in the beginning, how people want to know how much how long tell me how much tell me how long tell me how you What number do you do this at? Like, it's no, it's because you have no,

Amanda 1:06:31
there's nothing to go by.

Scott Benner 1:06:33
You have no context. No experience. Yeah, no, you have no context. And so you're scared that everything that's happening is about to be really wrong. That about right. Correct. Yeah. But so then the answer to that question is the only thing that fills that gap is experienced in time.

Amanda 1:06:51
I know which I'm so bad at that I'm an instant gratification kind of person.

Scott Benner 1:06:55
Mm hmm. Well, yeah, that's not gonna come with this. I know, Gosh, darn it. The good news is, is that you should probably try to enjoy this time a little bit. Okay, there's gonna be some big adjustments coming. And then after that, you should find some stability just in time for him to start growing hair on his

Amanda 1:07:18
right.

Scott Benner 1:07:21
This will all start over again. Oh, and then it's just gonna be a way it's just gonna be a ramp up, then. Yeah, you're bigger. You know,

Amanda 1:07:29
God was like doing some funny things when he gave us this, this disease, I think or for me, specifically, because I was a person who beforehand, I, I'm a health nut, I guess you could say. And so sleep for me was extremely important. Like, I would make sure that I got eight hours of solid sleep every night, enter diabetes. And then with diabetes, there's nothing that's concrete, it has to be very fluid. And I am very, you know, black and white for the most part and need to have an answer to everything. And this is the exact opposite. So yeah, it is testing me intentionally, I think

Scott Benner 1:08:04
last night, get me to chill out. Yeah, last night, we spent, I probably started cooking at like three in the afternoon. So I shopped in the early afternoon cooked all night, because I'm like, we're taking a bunch of food to my son at college. I don't know if that parks in here. So just for context, and spent the whole night doing is fairly exhausted by like the time 1030 or 11 o'clock came around. I'm 50. And, you know, I sit in a chair all day for my job. So I'm pretty exhausted by then. And still because of diabetes and all this, I think I was up to like 130. And then I popped out of bed at eight to do this with you so that I don't get in a car and drive two and a half hours with that food, to drop it off to my son. Basically give him a hug. Ask him how he's feeling and get back in a car and drive two and a half hours home because he has no time to talk to us today. So Oh, goodness. So nice of you prior to that, no, the point wasn't how great we are. That's obvious. That's not what we're talking about. The point. The point is, is that I have learned to deal with less sleep because of diabetes. I don't want I don't like it. But I know how to do it. Now the good thing is the algorithm should be letting you sleep. Are you not sleeping?

Amanda 1:09:18
No, it does. It definitely does most of the time. Yeah. But I mean occasionally, like when he had that cold, I had to mess with it through the night or occasionally I'll get his dinner wrong and it won't come back down where I want it to be. So no, yes, with the pump. I would say sleep is definitely much better than it was prior to getting the pump and we didn't have that long in between but and I think that the sleeplessness, really more is just my own anxiety around it. So I just sleep with one eye open more than I ever did. And I think that, you know, like things going off on my phone waking up more quickly or a little sounds outside and then I'll wake up and I'll check the Dexcom just to make sure that he's still good It's more than that really than having to actually treat anything. Yeah.

Scott Benner 1:10:03
So that happens to Kelly. Like now that Arden has diabetes. Kelly could have the flu and pneumonia, and have been up for four days straight and finally fell asleep. Then you hear a beep and she was what is that as Arden? Okay, like Adam, out of a deep sleep. Yep. Now I'm the one I opened all the time. Yeah. Now I'm normally the one that handles it, but still can't not hear it. Right. It's really interesting, whereas I don't really hear that anymore. Really? Yeah. I'm bad hearing it at this point. Though, I'm I don't mean that I can't hear. I don't mean that I can't hear the noise. I mean, that. I'm not like, what's that? Like? It's it. I just, I'm, I don't know, I have I'm comfortable enough about Arden's settings and how things go that I don't I don't pop up like a lunatic anymore. Yeah, yeah. So hopefully I'll get there one day. Yeah, you I'm sure you well. You know, it. I mean, honestly, forget, I'm sure you will. You should know, Amanda, based on the people who have spoken to in the past that this is gonna go really well for you. You just need the time. Yep. Yeah. And then you gotta chill out. You don't smoke weed or anything? You know, maybe I should. I'm saying I'm not a proponent. Like I'm not telling you to. But you gotta calm down. You know what I mean? Yeah, yeah, cuz we're not married. I can say that to you. That's true. Yeah. But let me just here, I'm gonna write down the time. That's where we're at here. So I can go back real quick and edit this out. You just gotta chill a little bit. You're making it? No, no, yeah. And everyone listening who identifies with you. You guys all got to hear that they need to just chill, calm down. It's gonna be okay. Now listen, don't get me wrong. If your kids blood sugars going from 40 to 404 140. You all need to figure something out. But if you're in this situation that Amanda's describing her, what was me 6.181, C. etc, you guys got to find a way to realize that the rest of this is experience. And that you can cannot rush getting experience. So okay. And mine only seems so much greater than yours, because of my time, but also because of all the conversations that I have. So I have like a Master's class and diabetes from talking to people. Right? The rest of you don't have that. You're trying to get it by getting immersed in your own situation, but your own situations not. It's not always real. Like you don't miss meaning you don't always understand what's happening. So you start formulating thoughts and theories based on you know, bad numbers almost. Right, you know? Does that make sense? Do you find that happening where you start, like flying down rabbit holes trying to

Amanda 1:13:01
Oh, 100% I'm very reactive, for sure. I don't let things ride probably long enough. A lot of times, because I just want to fix it.

Scott Benner 1:13:10
Yeah. Okay. Yeah. Sometimes you got to see it. So you know what to do with it? Yeah, I mean, sometimes it's kind of the key to the whole thing, like things have to go wrong, so that you understand how they go wrong. Because then once you have the tools, you know where to put the tools to stop it from going wrong. Yeah, and control IQ is I feel bad. Like, I mean, it's I've never lived with it. So right. I don't know. Yeah, you know, it's okay. Yeah, based on based on what I've learned from looping, you know, if you're, if your insulin sensitivity is good, if your Basal is good, if your carb ratio is good, and your Pre-Bolus thing, you know, you should be somewhere along where you mean to be. And then you have to understand that other piece with the glycemic load index of foods, like you can't just eat the sofa and expect something different not to happen. You know what I mean? And I'm not judging anybody. I mean, I think that's fairly obvious from the podcast, right? But right, you know, some people are, are sitting down with a, you know, a piece of baked chicken and 12, green beans and a couple of almonds, and some of you are trying to eat, you know, stuff. That's not really food. And then, right, and I'm not saying you can't figure out how to Bolus for it. I'm saying, don't be surprised when it's harder. That's right. That's all. I don't know that you're going to change his his palate when he's 11. Exactly. I would also tell you,

Amanda 1:14:40
and I also don't want him to feel like he, I mean part of it. Listen, I'd love for him to eat healthier foods in general, but part of me doesn't want to have to have diabetes be like I don't want it to be a punishment for him. And I don't want to have to say like, you can't eat this because it doesn't make your blood sugars look good or whatever. And and I want him to feel like he can do whatever he wants to. He doesn't have to be limited by diabetes. But I'm hoping that, you know, as he gets older, he starts to kind of figure some of this stuff out and wants to make some changes. But I don't know. We'll see.

Scott Benner 1:15:11
No, I agree. And I agree with you, too. And that happened for Arden. Like, I've told that story, like we left the endo appointment one time, and she just, she's really a little kid. She's like, is there anything I can do to help with this, and I was like, you could stop eating cereal until Daddy can figure this out. And she's like, okay, and she just stopped eating cereal. Rice, and I was, and it, it was the variable that was too big and too impactful for me to figure out with the amount of experience and tools I had at the time, like, I just couldn't, it was too much for me, I couldn't wrap my head around everything that was happening. So when we took away that impact, and simplified some of our foods, then I was able to see it better. And then I was able to take what I learned and then apply it to cereal. Yeah, and then, you know, that's it, because sometimes there's some of those insulin needs are so crazy. Mm hmm. Like, it's hard to make that leap when you're Bolus thing. You know, like, if Arden went to I think she went out and got like a bowl the other day like from Moe's so I don't know, it's, it's a shell. And it's, you know, they put in chicken and rice and corn and onions, and like guacamole and all this stuff. And yeah, we just randomly Bolus like 85 carbs for it. I don't know how much is in that. I don't even know how much she's gonna eat. Right? And there are times when ardonagh Wolf the whole thing down and there's times when she gets halfway through it. And she goes, I don't want any more of this. So I'm like, Yeah, okay, like, all right. So you just, you just have to get get the insulin in there ahead of it, and then work backwards off of it instead of forwards. So instead of, instead of meeting the food with the right amount of insulin, and keeping everything stable, you throw it around, you throw in an amount that the food can't possibly overwhelm. And then if she doesn't eat enough for it doesn't impact as hard, then you can address it with more carbs later or hopefully taking by taking away Basal insulin or something like that. Right. Okay. It's just kind of how I think of that, that bigger stuff, because I would rather I'd rather be ahead of it than chasing it. For sure. Okay, yeah, I get that. So do you have any questions? And don't be don't be like, if you have questions, now's the time. Let's go through them.

Amanda 1:17:30
I did write some things down. But I actually think that we were looking through them. So for you, if she if you get a Bolus wrong, and she does start to go above the number that you want her to be at how long do you wait before you address it with more insulin to see if it's because there's a lot of times with the CGM where it looks like I'll get a straight arrow up and then the next reading is a diagonal and it only bumped up by another two points or something. Do you know what I mean? Or even with the lows, where it looks like it's gonna go straight down? And then the next reading? It's only two points, lower and diagonal arrow and it kind of tricks you?

Scott Benner 1:18:10
Yes. So you're probably in a situation where it's possible that the pancreas is like, oh, gosh, what's going on here somewhere? Yes, outside of that scenario. When I first started doing this back in the day, it was 45 minutes and an hour and a half is where like my inflection points kind of where now I can see it. So there's a sharpness to the rise on the CGM. That indicates to me this isn't coming back. Okay. And then I just put in more. I got it. Okay. Okay. But it's, for me, it's on the I use the three hour graph. And I look at the, for what you're asking about specifically, I look I look at about the last 10 or 15 ticks, I guess. Yeah. And then there's a sharpness to it. That just says, oh, hell we missed, and you learn to see what it looks like. Okay, and then I apply an amount of insulin that I usually randomly choose. Yeah. Okay. Fair enough. Yeah. Sorry about that. But it's, you know, excuse me, it's usually some multiple of her Basal rate. So that if I have to bail on it, so if I've made a new Bolus and and five minutes later, you get that thing where like, it just stops and levels off. You're like, Are you kidding me? Right, like so some. Sometimes I'll try to trade the basil for the Bolus, like I just put in this one unit Bolus. And then it suddenly levels off. I might shut the basil off for half an hour just to try to like horse trade a little bit with the gotcha. But that's also a slippery slope. You don't want to be finding yourself doing that constantly because cuz then there's bigger,

Amanda 1:20:02
because the timing of those two things is probably not exactly in line with each other.

Scott Benner 1:20:07
No, they're not. Yeah, you're just doing your best to try to make a couple of overlaps. That'll stop a low later. Yeah. But I've also done that and shut off our basil and five minutes later texted her back and been like, oh, hell put the Basal back on. Sorry. Yeah. You know, I've also I've also made incredibly aggressive policies that literally 30 seconds later, I'm like, pushed up pushed up. Just kidding. It's not no, don't do that. When please respond. Damn it. And then I know, I inevitably get back a text that says, Too late. And I'm like,

Amanda 1:20:44
Oh, that's good to hear that you do things like that, too?

Scott Benner 1:20:46
Yeah, sure. It's not a I mean, did you think this was a perfect science?

Amanda 1:20:51
Yeah, I don't know. You got it down pretty well, it sounds like,

Scott Benner 1:20:54
um, yeah, I do. But again, it's time it's willing to, it's willing to be able to twin to talk about it like this. Yeah. Like, I think this conversation is really cool. Because this is the exact kind of stuff that I think people talk about privately, they would never say out loud in public. Right? Because it flies in the face of most things that most basic concepts that you mentioned earlier that your doctor gave you that are really not very helpful. Once once you get into the minutiae, right, you know, like, exactly count your carbs, you know, put the insulin in. Think about what they really tell you, right, like get, count your carbs, put your insulin in three hours later, check your blood sugar, see where you're at?

Amanda 1:21:40
That's it. I haven't talked to our endocrinologist. I haven't called them or talked to them for advice on changing anything since our last appointment over three months ago, because I realized that they were just guessing they were 100% guessing.

Scott Benner 1:21:51
Okay. Yeah, yeah, they're like, ah, you know, so you're getting low every night at 2pm. A 2am. Let's turn your Basal down at 2am. Like what? Yeah,

Amanda 1:22:02
yeah. And I saw it like, I knew I could tell that they were totally just an educated guess at that. But I mean, just guessing. So I'm like, Well, what I'll guess like, oh, I can do that.

Scott Benner 1:22:12
Listen, I'm gonna say something, Amanda, that maybe won't rub people the right way. And I'm not just talking about the medical profession, but in general, right now. World goes to hell in a handbasket. Right? They're coming in by planes, tanks are crashing into the shores. How many people you hunker down with who you think these are the people who can get me through? How many do you know?

Amanda 1:22:33
I'm one?

Scott Benner 1:22:35
Yeah. Okay. So now you're randomly calling a random doctor's office that you went to, because the hospital that you ended up to with when your son was diagnosed, told you about this endocrinologist? And you're talking to the lovely person that answers the phone, who's 20 years old, who then moves you on to the person who's been out of school for three years and doesn't have diabetes? And you're asking them a pointed question about a Basal insulin. Right? And even if they know, how are they really going to know they're not there? They don't have this, like this thing that we did that for this last hour. They don't have they don't have this critical thinking around the minutia stuff. Right. So it's unfair to them on top of the point that I don't know 10 People who I would trust with my life, sadly, and I bet a lot of people and I'm not saying you're all prop like people, I've met her like, I just don't know you well enough. You know, like, this is a weird thing to be asking someone. So I joke about me being a stranger from the internet. But how many hours? Have you heard me talk about diabetes? Countless a lot. Right? So yeah, I've listened to a lot. Yeah, I'm not really that unknown to you. You know, exactly. Right. So. And I'm not saying there aren't people out there there, obviously. I mean, Jenny's like, you mean, I've spoken on the stage with me. And I felt like I held my own. You know what I mean? But I also wish, if you said to me, Scott, I can ask you or I can ask Jenny about something I might be like, I might ask Jenny. You know, like, I don't know. Yeah. And there are times when Jenny will text me and be like, What do you think of this? And we'll talk back and forth sometimes. And I know, I know. She respects me. I know. I'm in that space a little bit. Yeah. But who else is there? Really? It's not even even the doctors. I mean, I don't know how it works in your health system. I I'm not sure I could pick Arden's endocrinologist out of a lineup. Right? Not kidding. We never see her ever. Mm hmm. And her nurse practitioners, you know, terrific, but I don't remember the last time she gave us any like, pointed advice about insulin. Sure. You know, she says things like I'm concerned. They say I'm concerned about this low here, which I'm starting to think isn't is a liability thing. Yeah, because if you go that's not a low that is a compression low they go okay. And that's it. We're done talking about it. Now. You I think that's liability that they have to point it out to you

Amanda 1:25:03
for 100%. Yeah, I'm sure it is right. To be able to chart it.

Scott Benner 1:25:07
Yeah, I think that's exactly what's going on. So I don't know what's happening for like, I mean, I've been in appointments where I'm not sure if I'm being like, if that's the conversation we're having, cuz it's me, or this is what the conversations are like. And I would tell you that if I wasn't me, that those conversations wouldn't be helpful. Yeah, you know,

Amanda 1:25:29
it's not Yeah, it's they're very, very generic. I feel like but I mean, I understand it.

Scott Benner 1:25:34
Yeah. Your Site feels good. You're doing great. Good job. Yeah. Blah, blah. Like all right.

Amanda 1:25:39
Right. Collison, urine, DK, or

Scott Benner 1:25:42
Yeah. Can you tell me how many minutes after I miss on a Bolus? Should I readdress this three hours? Oh, great. Perfect. Don't stack? Yeah, don't stack your insulin. Why? But I mean, it's a bunch of years. 300 You can't stack your insulin.

Amanda 1:25:58
Right. Right. Yeah, exactly. I have one more question for you. And it's probably another more of a neurotic question, but I'm going to ask it anyway. So the difference between changing like doing a Temp Basal adjustment versus an extended Bolus when would generally speaking, why would you use one or the other?

Scott Benner 1:26:22
I like a Temp Basal. Let me get some water. I like a Temp Basal in a karbi. situation. Okay, so if you're going to, you know, if it's I don't know, Thanksgiving Day, and there's food out on tables all day. If your Halloween Yeah, well, Holly last sell sugar, a lot of simple sugar, that's harder to think about, you might get a lot up and down at Halloween, if you're too aggressive. On a day where you're running around, and somehow you eat pizza for lunch, and then grab Chinese on the way home, like you don't like that kind of a situation or you're just having a meal, where, you know, one hot dog turned into three hot dogs, and there were chips. And there were all this, I might create a blanket of basil overtop of the timeline. That is the impact of the food. Okay, yeah. And, you know, just to, you know, because in my mind, the basil is sort of like a blanket that's holding down on your body's function, right? Like, it's, let's be clear, Basal is just to control body function, right? It's not for food, but you can maneuver you can manipulate it and you know, to use it for food. So if your kid needs point two, five, to control his body needs, right. And then suddenly, he eats a bunch of hard or long impacting foods, I might then want that pressure that's coming down from the Basal to be heavier so that when that food starts pushing up, because it's going to push up over such a long period of time, I like there to be a more even coverage of heavier Basal for something, okay? Because, because when you Bolus for it, you're going to get that, you know, nothing happens then an influx and then, you know, that's about it. Like right like the insulin peak. So you you've got that pressure at one time. I like to see it across the whole thing.

Amanda 1:28:24
Okay, so then we went about an extended Bolus and

Scott Benner 1:28:27
Bolus. I don't love extended Bolus, but if I was gonna use them, I would use them for you know, a thicker, you know, thin crust pizza, not so much. But a thicker crust pizza that has, you know, maybe meat and cheese in it. And so you know, you're gonna get that fat and protein rise later. But you could also just do the good also listen to the episode about the fat and protein rises and just make a pinpoint Bolus for the fat and protein later to or for the fat later to excuse me. And I used them a lot at school before to Pre-Bolus when her blood sugar was lower. So

Amanda 1:29:11
if Oh, right, okay, so give a smaller percentage of current and then yeah,

Scott Benner 1:29:15
so Arden's like, you know, it's time to Bolus for lunch. And we need some sort of a Pre-Bolus butter, blood sugar 78 And she's got 45 carbs in our lunch, and that's gonna end up being you know, 11 units of insulin like not super comfortable giving Arden 11 units of insulin 10 minutes before social studies ends, and then she's got a walk through the school and then you're hoping she starts to eat on time, etc. So, if that in that specific scenario, if she was like 78, I might do the 11 units 0% up front, the rest over 30 minutes. So that these 11 units are going in pretty aggressively, but not like a Bolus over 30 minutes. So then To 15 minutes later, when she sits down to eat half of those 11 units are in. Right. So I do sort of get ahead of it like so I've used it like that before and with different breakdowns like, you know, if she's 85, I might do 20%. Now the rest over a half an hour. So that's a way right, I'll use an extended Bolus in a way that it's not really meant to be used. I'm just, I'm just using it as like a time release Bolus. Gotcha. Right. That makes sense. Yeah. But I mean, those are, those are some of the places you might do it. But they're also very hit and miss. And they can be they can be frustrating while you're learning how to do them. Yes, you know, so I agree Friday,

Amanda 1:30:45
I tend to use the extended Bolus a lot. Because with the control IQ, I turn that off, and I just don't have competence, especially when he's at school that he's gonna respond quick enough to fix something that needs to be fixed. So I just use an extended Bolus, as opposed to a Temp Basal a lot when he's at school.

Scott Benner 1:31:05
Okay. And it works for you.

Amanda 1:31:08
I mean, it seems to right now, anyway. Yeah.

Scott Benner 1:31:11
Well, I mean, listen, in the future, it'll just have more basil, you know, a stronger basil. And so I don't see why it still wouldn't work from what I understand from talking to people. The bigger problem with to generalize boys, isn't it? You know, obviously, the, the hormones are going to be one of them. But that actually might not happen till they're a little older, as as drastically as like, unlike the girls where you could see it, like 1112 13 years old, and they're, the bigger problem is when boys are just, you know, classically boys? Yes. And they're just like, I don't care. It'll be fine. Or I'll just run through the wall. Like that kind of stuff. You know? Yep. That that might end up being the more challenging aspect of this at some point. Mm hmm. So yeah, I don't sure I can see that. Yeah, I think boys will be boys is a thing for some sort of a trail of real. Yes. Yeah. It'll be, it'll be fine. Don't worry about it. Yeah, when my wife and I were first married, we took a road trip to Washington, DC, for navigation systems. And before like it, like you needed a map, if you wanted to know where you were going back then. And we get in the car, and it's nighttime, like who went on a Friday afternoon after work? And they were driving and it gets dark. And she's like, you don't have a map? And I was like, no, she goes, How are we going to get there? I'm like, It's Washington, DC will drive south on I 95 Until we see a giant white building, and then we'll get off the exit and look for the streets of the hotel. Right. And she was mortified by that. Like, I we arrived at the hotel, there's nothing eventful about the trip whatsoever. And she got in the bed. And I was like, are you alright? She's like, I'm just I'm very anxious. And I was like, about what? And she's like, we didn't know where we're going. The whole time. I said on the whole time. We knew we were going to Washington. I was there's this main road. It's, you know, it leads right to what there's a giant white dome. It's lit up like we couldn't possibly what about signs? Like you don't think at some point, there's going to be a sign that says Washington DC. And, and that was my extent of being prepared for that. And I'm trying to say that that theory wrapped into a 14 year old China trying to figure out how to Bolus before he goes out in the woods and rides a motorcycle might be fun. So

Amanda 1:33:34
yeah, yeah, exactly. Yeah. That's pretty much my life. That's where I'm at.

Scott Benner 1:33:40
Alright, was this in any way helpful to you? Absolutely. Really? Okay, good. Yeah.

Amanda 1:33:46
Yeah, really? Honestly. I'm glad. Yeah. I mean, I think it's helpful for me to hear that what what we've got going on is like, it's fine. Because you don't see. I don't know, I don't you don't know what you don't know. We don't know a lot of other. Well, I mean, so we do know, obviously my niece but they're just as new to this as we are. And then the only other person that we know that's in my son's class is was diagnosed three months ahead of Connor, my son, Connor. So you know, we're all trying to figure it out together. And outside of that, I don't really know anybody that's been doing it long enough to know what's to be expected.

Scott Benner 1:34:17
Yeah. Hey, I want to make a little PSA right here. Don't everybody send me a note and want to do this? Okay. Please. Thank you, right. Yeah. No, no, no, Amanda, that would, but Amanda doesn't know about herself is she was the right blend of neurotic and normal for this conversation. And I figured that out while I was talking to her. So I didn't think you weren't going to talk over me the whole time. You were going to be okay with me doing a lot of the talking. And I knew you would be good for this. So also, here's the thing. If you feel like oh my God, I need this conversation to a man this conversation will go exactly the way your conversation will go. So there's nothing particularly special or that much difference between how Amanda's feeling and how you may be feeling. If you're right now saying, oh my god, this is my life and listening to this. Yeah, pretty much whatever we said is going to apply pretty well to you. Yes, yeah. All right.

Amanda 1:35:14
I appreciate it very much.

Scott Benner 1:35:16
Oh, it's my pleasure. It really was. I don't want to thank me. I thought this was terrific. I thought it was great for a podcast too. And I was happy to help you. You know that I wanted to do this because we're doing it on the day. I don't usually record. Yes,

Amanda 1:35:29
I do. And I really appreciate that. No,

Scott Benner 1:35:31
again, you're not supposed to say you're not listening. You're not supposed to thank you for it. I'm just it's an indication of how much I wanted to do it. Because if I didn't want to do this, we definitely wouldn't be doing this today. That's just true. Okay, so hold on. I'm going to ask a couple more questions about your husband's shaving but I want to do it privately.

First, I want to thank Amanda for coming on the show, and having this conversation in front of all of you. And I'd also like to thank our newest sponsor, US med. There's no need just no need for it to be difficult for you to get your diabetes supplies. Us med.com forward slash juice box or call 888-721-1514 I'm so happy to have an advertiser with a phone number now, because I'm like doing an impression of like, infomercial like voices from when I was a kid 888 Anyway, oh, touched by type one.org Don't forget them. Great sponsor wonderful place. Go check them out. This was kind of a long episode, so I won't dilly dally here at the end. I'll just say thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. And I guess I will note that a lot of the stuff that I talked about in today's episode is it exists in detail in the diabetes Pro Tip series that begins at episode 210 In your podcast player, or can be found at diabetes pro tip.com, and juicebox podcast.com. Also, if you're See, I'm going online now, I know you're laughing at me, I don't care. Also, if you're in the private Facebook group. There are these great lists of all the series in the podcasts, the pro tips being one of them. You kind of go up to the top and there's a featured tab. So first of all, it's a private group, you're gonna have to answer a couple questions to get in. Once you're in there. You're going to be with about 23,000 other people who are using insulin just like you great place completely free, featured tab lists of all the series, including the pro tips. Now I'm really leaving goodbye


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#656 Defining Diabetes: Barriers

Scott Benner

Scott and Jenny Smith define diabetes terms

In this Defining Diabetes episode, Scott and Jenny explain barriers.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon AlexaGoogle Play/Android - iHeart Radio -  Radio Public or their favorite podcast app.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode Wow 656 of the Juicebox Podcast. That number took me by surprise

today, today's episode defining diabetes with Jenny Smith is going to be just a little different than usual. First, Jenny and I are going to define a term, we're going to talk about barriers. Jenny and I are going to talk about some situations where you might need barriers between your medical devices and your skin. And then I'm going to read to you a ton of suggestions from the private Facebook group about the barriers and creams and wipes and all the stuff that they find helpful. little bonus content on the end of a defining diabetes episode. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. We're becoming bold with insulin. Don't forget that Jenny Smith does this for a living you can find her an integrated diabetes.com. And if you're a US resident who has type one, or is the caregiver of someone with type one, I would personally appreciate it if you took the survey AT T one D exchange.org. Forward slash juicebox.

This show is sponsored today by the glucagon that my daughter carries G voc hypo Penn Find out more at G voc glucagon.com. Forward slash juicebox. Alright, Jay, so my only my only only experienced with this came when Arden was about eight years old. I haven't thought about this in a while I wrote a blog post about a really long time ago. But she was starting to get irritation under her insulin pump. Okay, and I was at my wit's end, I really didn't understand that I wasn't as entrenched in all this back then as I am now. The Internet wasn't as helpful as it is now. And I I didn't know what was going on, right. So I stand there one day like thinking I swear to you like just standing thinking. And I was, I don't know what happened was rubbing my fingers together while I was thinking. And I was like, wow, my fingers are so dry, like dry and cracked. And like, why are my hands dry and cracked. And I thought about I thought about it, I was like, I am touching alcohol constantly. Right? I'm cleaning Arden sites, I'm cleaning her pod sites, I'm always my hands always behind them. And that sent me to the internet, where I did some Googling and learned that in Europe, I believe this a long time ago. So you know, don't hold me to exactly where but the standard of care is that you don't prep sites with alcohol, right? You prep them with I forget what they do a mild soap and warm water or something like that. And then just dry the site, dry the site. And I switched to that and art and stopped having irritation. And my fingers aren't crusty and hard anymore. So that's how I fix that. Now Arden obviously didn't have a real significant reaction because the alcohol I think was just drying her skin and then making her more susceptible to whatever was in the adhesive, which I imagine the adhesives probably made out of something completely different now than what it was made up back then. But that was the first time I thought about it. And then in the first like 20 episodes of this podcast, a woman came on. I can't even remember the kid's name still Mason. Because this kid had, like he put on any kind of medical graded he's of and his entire body broke out. It was horrifying, right? And but she wanted to use these things. And this woman just man, she just figured it out. Like she built a concoction of barriers and wipes and everything and made it to this kid could wear it. But it's a world I don't know much about so I'm going to ask you like how many people do you think out of 10 or 100 have to put some sort of adhesive barrier on is it many?

Jennifer Smith, CDE 4:25
I think that a an easier estimate is probably out of 10 I'd say that there's probably one person out of 10 Give or take that probably has experienced some type of adhesive irritation at some point. So like you found you removed something that was essentially just it was literally taking all of the natural oils out of the body. That's what alcohol wiper Alcohol does, right? It just it's a degreaser it takes everything off. So does it clean your skin? Sure, but it cleans it almost to the point that then when you're putting something else on top of it, that kind of like locks in that dryness and is sticky, you're irritating skin that's now dry, and you're doing it over and over. It's not just like one time, right. So sometimes it's cleaning up enough of what you're doing that can take care of it. Other people though, definitely have to use a barrier of some type. I mean, I've seen rashes that are very just specific, right around the edge like the the underneath the adhesive doesn't seem so bad. But it's like right around the edge of the adhesive. That gets irritated enough that it almost looks like the pump site is still there. Or the CGM site is still there, even though it's not. Some people have it bad enough that it it blisters, like horribly like blisters, like almost like you'd see in Oh, what is it leaves of three, let it be, you know,

Scott Benner 6:13
poison ivy or poison ivy,

Jennifer Smith, CDE 6:14
poison ivy, I couldn't like I knew the little rhyme but I couldn't think of the plant like poison ivy, poison oak, which I actually had, I had one of them, they didn't know which one it was, but I had one of them in the blisters. And it's so itchy like unbelievably right. So some people get that degree, and it takes forever to heal. And when you have I mean any kind of body, but little tiny bodies have such little real estate to begin with. That if you've got this big inflamed site on one area that takes an entire month or six weeks to heal up. That's now you're sticking it someplace consistent enough that you can start to cause problems in another place just because you're not rotating well. Right, right. So I mean the kinds of barriers there are some, like hypoallergenic types of barriers like tegaderm, there's another one called IV 3000. It's like a really, really clear thin that you kind of cut a little hole in where the infusion set or the sensor is going to go into the skin. Clean the skin, put that on top of it, put the pump site or the in the in the sensor on top of that. So really, it's adhesive is sitting on top of this barrier not on your skin. That works for some people. Other people as a barrier can get away with just using like a topical kind of like a spray Benadryl let it dry, put the side on top of it or a spray floaties can spray it right over their skin same thing and that can be enough. So I've seen I've seen everything that we

Scott Benner 7:54
have to be a little bit so I went to this so after this this lady came on and and she actually the kid's name was Henry. That makes me feel bad. Why did I say Mason? I don't know. Damn, I was so confident when I said Mason. But the woman's name was Rachel and after she was on the podcast I actually asked her to write a blog post which I still have on the on the face of my of my my website because people use it so much. But here here's this is from 2015 But she washed the area with warm water and antibacterial soap Do not use alcohol. Completely dry the area. She applies one puff of Flonase she says you can sweet talk or demand this prescription from your endo if it's necessary. Then she applied a thin layer of have Alon barrier cream that she got from Amazon it's made by three MC a V i l o n again this is like eight years ago. Then she says she applied a layer of tegaderm HP 9534 HP not just tegaderm and I'm like boy this lady dug deep you know

Jennifer Smith, CDE 9:00
and the ticketor comes in multiple sizes too. So if you're looking for it know the size of your site that you want to cover because it comes small to big she listed

Scott Benner 9:09
six by seven centimeters. Place the inset through the tegaderm HP. Then she said they placed another layer of tegaderm on top of the pump to provide an extra layer or barrier for the adhesive of the detached inset. Not sure what she means there when wet blow dry sight with a hairdryer on a cool setting. Apply prescription hydrocortisone after removing the tegaderm hp on at on an old site and she only removes extra adhesive with something called Callan doula oil. Yeah, so she this is I mean, if anybody wants to see it's this this little kid. His face is red. He's got splotches all over him nowhere near where his medical adhesive is either. He was just allergic to this.

Jennifer Smith, CDE 9:56
I had a gentleman who emailed me an adult diagnosed as an adult, who all of a sudden for some reason, started having irritation around his sensors, like had been using them forever. And on a business trip was itchy itchy around the site and he removed it. And it was like that blistered that blistered level of skin. And then he was like, Well, maybe it's just the site, you know, maybe it got like, maybe I didn't clean it well enough. So he put a new one on, and by the next morning, he had irritation, same thing around the skin. And the funny thing is, it went on and into that week, places up the same side of his body where he had no sights at all sounds like the same little boy. He had, like, Welty blistery places on his body that had not even been touched by a site yet something

Scott Benner 10:51
else. It's terrible. If anybody's interested, I can't believe I'm saying this, as we're in the six hundreds now, but it's episode 14 of the podcast. Wow, that was a long time ago, Scott 2015. And

Jennifer Smith, CDE 11:05
she's got a lot of really awesome. I mean, all it sounds like she's gone through like, all of the products, the only thing that that we would usually caution is what we call green housing, a pump site, or even to CGM

Scott Benner 11:21
because of humidity. Right? Right. You

Jennifer Smith, CDE 11:23
would, in fact, if I'm glad it worked for her again and have one great, we don't recommend it, though, because the humidity or any moisture underneath that could actually create more irritation underneath yet. But again, her story, it works for her and her son, so that's great. Yeah,

Scott Benner 11:42
I mean, it's a it's a real indication, at least to me that if you I mean, try hard enough, get the right information, get a little lucky, you might be okay with it. But I see people who just persevere and there's no need for that, like, there's some of these barriers are just too available and work too. Yeah, you know,

Jennifer Smith, CDE 12:00
well, and the one thing I was gonna bring up to about this is that in terms of when you might see a seasonal need to use barriers versus other times of the year that it's not necessary at all. So you know, if that's something that you're noticing, don't think that you're crazy, you know, once you get into like, fall and winter, your issues go away, or once you get out of the dry season and you get more into summer, it goes away. It could certainly just be seasonal, based on kind of the humidity and nature of the air.

Scott Benner 12:31
Yeah, well, okay. Well, I'm, I'm glad we talked about this, I'm going to put you know what I'm gonna do with this one, I'm going to, I'm going to do some work, Jenny, I am going to go back to the Facebook group. And I'm going to ask people for what they're using modern day here. And I'm going to put the list at the end of the podcast. Awesome. All right. I mean, I'm busy, but I'll do it. Thank you very, very, so helpful for everybody. Well, I'm looking for a pat on the back here because this is extra effort. But I think it's not just kidding. I know I think I think it'd be interesting because because this article that she wrote is so old to hear if people are found updated stuff and maybe get a good list. So I think it's a great idea. All right, awesome. Thank you. Yeah.

Hey. G voc hypo penne has no visible needle, and it's the first premixed autoinjector of glucagon for very low blood sugar in adults and kids with diabetes ages two and above. Not only is G voc hypo pen simple to administer, but it's simple to learn more about. All you have to do is go to G voc glucagon.com Ford slash juicebox. G voc shouldn't be used in patients with insulinoma or pheochromocytoma. Visit G voc glucagon.com/risk.

Don't forget there are a ton more defining diabetes episodes right there in your podcast player. And at juicebox podcast.com. You can also find the diabetes Pro Tip series and many of the other series. All right, wherever you listen, you might want to check out the private Facebook group for the Juicebox Podcast. It's called Juicebox Podcast type one diabetes. And please consider taking the T one D exchange survey AT T one D exchange.org. Forward slash juicebox right back to the episode now. Maybe I'm going to read people's suggestions in different voices. Each suggestion gets a different voice. I'm a man of 1000 voices are you ready

so I put a post on the private Facebook group after Jenny and I recorded this. The post was simple it said barrier wipes creams and patches. If you have a recommendation, please leave it here. Your product or methods may be used in an upcoming episode. Now I'm going to get through this as well as I can, there were 187 responses, I'm quite certain I won't be reading all of them to you. Alright, I'm sorry, there's not going to be any attribution to the people who left these because it'll make it'll just make me crazy to try to add the names. So you're ready. Smith and Nephew skin prep, which is a protective barrier wipe available on Amazon. In the past, we've used that company's version of adhesive to put overtop of Ardens CGM. Currently we're just using the overlay that Dexcom provides. Somebody here says they use expression med patches. This person says what works best for them before a pod they put on kavalan spray as a barrier. And for removing the pod Lift Spray and then lift wipes. They say they work amazingly well. They use dream cream from Lush on the site where the pod was afterwards and then somebody came in and said I love dream cream. I don't know what dream cream is. But two people here think is pretty cool. Someone here says they're using baby oil to help the devices come off to loosen up the adhesive and they're using a adhesive called HyperFlex which they say is available on Amazon. This person says they use two layers of Flo neighs base and then skin tack that works well for them. Here is a person that says wipe site with alcohol wipe. Spray Flo neighs. Dab one skin tag placed x comma on the pod. Then they put on Alexa cam patch for Dexcom or a pod pal for Omni pod. When they have a skin reaction, they use hydrocortisone to clear it up. Brandy Johnson here to make a good point. I'm going to read it for you. She said the one thing I'm seeing here is that there are two different issues some people in the thread have a typical mild allergic reaction and they can get away with less prep, but others have major reactions that are almost like chemical burns. She said hers was the ladder and the only thing that worked for her was to completely cover the device adhesive. Bandaid brand extra large size, Hydra colorectal bandage on the skin and then the device on top of that this next person says that when you're dealing with type one and eczema, a cloth feel adhesive patch works better than a latex feel adhesive patch. There go to is something called simp patch or sim patch Excuse me. And they also use the Smith and Nephew remover wipes which is a good company and I've used some of their products in the past as well. Becky says that she cleans sites after the device comes off with something called my cellular my seller water M IC e ll AR to remove the residue. This person is suggesting something called LaRoche Posey Lipikar balm. Wow for the rashes says that their child gets horrendous dry cracked skin in the winter. LaRoche Posey Lipikar balm AP plus intense repair body lotion sounds like I'm doing an ad for it. I don't even know if it works. Here's a vote for skin tack for a barrier and then they use a stay put adhesive for Dexcom they've bought peels for fun but they don't last as long they say not as long as the stay put brand

here's another person says floaties is a barrier for preventing a rash but you really have to let it dry out where the adhesive won't work well. They also like skin tack wipes and tech away wipes as a person here talking about how hype effects comes in a two inch roll. That looks like another Amazon thing. Here's someone talking about a wipe they use to prep the skin. They say it's like alcohol more portable than soap and water dries quicker they don't need Flonase brava skin barrier spray is what they're talking about brava skin barrier spray they're also talking about something called BZ K antiseptic, antiseptic tablets but you guys use a whole bunch of stuff. I have to be honest I just wipe it off with some warm water boom we slap that thing right on there I'm starting to feel lucky that we can do that. Um Let's see what we got here. Smith and Nephew tincture of benzos pump spread A liquid bandaid spray and it worked really well they said and they've added the Smith and Nephew but haven't tried it yet. Some people said they use googan for removal. I didn't know that was for people. Is it here's one for next care mmm 11803 spray liquid bandage. This person says they remove the adhesive afterwards with an alcohol wipe hmm I personally don't like using alcohol but to each his own. This next person says kavalan spray is the best. There are T one is elite allergic excuse me to all adhesives. Even breaks out from skin tack Flonase helps them but they prefer the calculon spray. This person says for for a barrier they use try my Jesus Lord Tria, MCI n o l o n e spray. Creams these baby oil Aqua four and Vanicream patches they love expression med patches and for removing adhesive they like baby oil. Sometimes yunusov But they don't like the chemical smell. I'll tell you what that yunusov works really well but it does stink. Stinky stinky stinky. Like after you use it you almost have to wash and wash the area so you don't smell it. But it is what we use here yunusov When we use it I don't really don't really use that often. Someone here is talking about a liquid adhesive called Marisol three M kavalan wipes for tea slim antibiotic cream for after the change. This person says they've tried several different brands of over patches. By far the most sticky and long lasting has been Lex cam adhesive waterproof looks like they make a Dexcom G six adhesive this Lex cam company another Amazon item wow there's so much here you guys are pretty cool to answer these questions like this person says they're allergic to expression med patches. And they go through a whole thing here skin tack is a possibility currently they're doing a clean slate with hypoallergenic soap dry Flonase times to dry Smith and Nephew dry hype effects sugar under patch then the Dexcom and hype effects on top and acute sugar patch for design so Alright, well that's nice. Wow, this she put a picture of her kid's arm here. It's really terrible. It he said he's uh, allergies are just nasty sometimes for people. Okay, Cavalia and cream tegaderm. Alright, I'm getting pretty far down the list here starting to see a lot of duplicates. Although here's a new one. All care protective barrier wipes. That's a ll kare. That one's from Isabel Isabel. Look at you helping out. What's next? This person says the sugar patch best patches the sugar patch.

Let's see. Let's do another sugar patch skin prep. Alright, we're getting down to it here. I think it's a great thread by the way. I'm going to leave it up for a little while in the private group. If you go to the top and go to featured I'm going to leave this thread in there so you can really go pick through it. Yeah, I think I'm down to I think I'm down to some repetition here. I'm just I'm scrolling real quick to be sure. Oh Goo Gone does make a bandage remover so they make one for your skin as well. Here's a vote for not just a patch calm tegaderm Fixi see adhesive patches for G sixes fixie see if i x i see on Amazon expression met against they put medical again. Sensi care barrier wipes and Cincy care adhesive remover spray have been awesome, says Julie. Sugar patch they put medical Flonase What's this one? This one's different. colo past barrier wipes to protect the skin COLOPL A S T. This one first person says I have to be honest what we use. It's hard to beat the free Dexcom over patches. They'll send you 10 of them every month if he asked for them. I agree we use them. They're terrific. Arden of course isn't allergic to anything so we don't have to worry about a lot of this but they are great if you don't have any allergies to adhesive. Here's one from Josh he says freedom band for Dexcom G six Benadryl, Some people use Benadryl spray underneath a barrier to prevent adhesive reactions. This person says not to use alcohol I have to agree. Alright guys, I think that's it. We've, we've, as they say, done it. I'm still scrolling. By the way, there's so many lovely people. Here's one safe and simple skin barrier on Amazon. I haven't seen that one yet. So another vote for fix IQ. Let's see. And we've done all right. Wow, I'm looking at some people's pictures of the reactions to adhesives and they're just terrible. Okay, guys, that's it. 187 replies, I've done a good job of picking through them and getting you everyone that was in there. None of these people are sponsors. I did not take any money to say anybody's the product I just thought this would be something for you. That might be helpful just to hear what everybody else is doing. Again, if you go to Juicebox Podcast, type one diabetes on facebook and join the private Facebook group. Right there in the featured tab at the top. You'll find this post which I will leave up there for absolutely as long as it is popular and people are commenting on it. Last thing I want to say is that for a great many of you, if not for most of you, and he's problems like this will never be an issue. But for the people for whom it is an issue. It is a serious one. And I hope something here today helped you.

A huge thank you to one of today's sponsors, G voc glucagon find out more about Chivo Kibo pen at G Vogue glucagon.com Ford slash juicebox you spell that? G v o OKEGL. You see ag o n.com forward slash juicebox. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. If you're enjoying the show, please share it with someone who you think might also enjoy it.


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#655 Roll Tide

Scott Benner

Trace Beasley has type 1 diabetes and is the Director of Clubhouse Operations for the University of Alabama Baseball.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 655 of the Juicebox Podcast.

On today's show we're going to be speaking with trace Beasley trace is the director of clubhouse operations for the University of Alabama baseball team, and he has type one diabetes. If I'm not mistaken, we're all supposed to say Roll Tide. Please remember, while you're listening today that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise. Please Always consult a physician before making any changes to your health care plan or becoming bold with insulin. If you have type one diabetes, and are a US resident, or are the caregiver of someone with type one diabetes, and are a US resident, please consider going to T one D exchange.org. Forward slash juicebox. Join the registry, fill out the survey, the whole thing will take you fewer than 10 minutes. When you do this. When you complete that survey, you'll be supporting the podcast and supporting people with type one diabetes. The questions are easy. The entire thing is HIPAA compliant and absolutely anonymous. You'll be happy you did

it this episode of The Juicebox Podcast is sponsored by Dexcom, makers of the Dexcom G six continuous glucose monitor. Learn more and get started today@dexcom.com forward slash Juicebox Podcast is also sponsored by the pod makers the Omni pod dash, find out if you're eligible for a free 30 day supply of the Omni pod dash at Omni pod.com Ford slash juice box.

Tracy Beasley 2:02
Hello, my name is Tracy Beasley. I'm a baseball manager from the University of Alabama baseball program. And I have type one diabetes for 14 and a half years.

Scott Benner 2:14

  1. How old are you now? 2030. You are nine.

Tracy Beasley 2:19
I got it. I was diagnosed two days after my ninth birthday.

Scott Benner 2:24
Oh, no kidding. Happy birthday to you, Chase. Thank you. What a wonderful gift. Was there? Was there's the wrong word like me nine years old. It's pretty young. Do you have any recollection at that time at all?

Tracy Beasley 2:41
I just remember. I was in second grade and coming back after Christmas break. Going back to school. I remember just not being myself at all. Just I've always been a kid that enjoyed going to school. Just never really like I woke up and be like, I don't want to go to school today. Just just tired of it. And then playing lowly baseball growing up. I remember just in the middle of games having to go use the restroom. Pot about five times just during the game. It was just an I would drink three to four bottles of water during the game just because I was so thirsty.

Scott Benner 3:25
Yeah. How long did it go on for before you were diagnosed? Do you think?

Tracy Beasley 3:31
Occupy said about three months? No. Four months?

Scott Benner 3:34
Do you lose a lot of weight?

Tracy Beasley 3:36
I lost 20 pounds. I was 75 pounds. And then I went to 55 pounds real quick and I don't know how parents like you know how this happened? I was like I had no idea.

Scott Benner 3:46
I you have any brothers or sisters? I do have a sister she older younger. She's older, okay. I mean that's so that's a lot of weight off of 20 pounds or 20 pounds off on a 90 pound frame is a significant amount of weight. You must have looked like a skeleton.

Tracy Beasley 4:04
Oh, I was tiny. Very, very tiny.

Scott Benner 4:08
No kidding. So your parents take you to the hospital to the doctor. Do you remember any of it?

Tracy Beasley 4:13
So my birthday is May 21. Then I was diagnosed on May 23 2007 is on member may 23. Actually, but not before I went and spent the night at my grandparents house. Both my parents are teachers. So no the last few days school when your elementary school you know you really don't have to go because you know elementary school don't have fun or anything like that. But my parents they were teaching high school high school so they had to give final exams. So I remember on May 22. I went and spent the night at my grandparents house and I'm ever waking up at one in the morning. I went and woke ma my granddad up and I was telling him I was so thirsty. Well made him go into the kitchen. I had 10 cups of water that night. Because I was so thirsty. Yeah, the my grandmother, she woke up and she heard us in the kitchen. You know, she'll ask, you know what was going on? And my granddad told her what was happening, and then that it didn't matter what time in the morning it was my grandmother called my mom and said, You need a trace to the hospital. Something's wrong.

Scott Benner 5:24
Yeah, you were probably dying, man. Right? Yeah. Are you in decay when you got to the hospital?

Tracy Beasley 5:31
When I went to the doctor, my blood sugar was 536.

Scott Benner 5:36
Yeah, plus you it sounds like it have been going on for quite a little bit of time, too. Right? Yeah. Wow. How long were you in the hospital?

Tracy Beasley 5:42
For four days?

Scott Benner 5:44
So what's it like then? When you're done? And at the hospital, the hospital stays over and you come home and you have to manage diabetes. Now we're talking about What year was this? Was this 2000 777? You were diagnosed just after Arden. How long have you you've had diabetes. 14 years. You're about me, ginger. You're not quite a year behind my daughter. As far as far as lifetime she was diagnosed. August 2006. So yeah, you're only maybe maybe eight, nine months after her. You were nine. She was two. So I mean, I remember so this is interesting. Because you're what you get you got you have needles, and a meter. That's about it. Right?

Tracy Beasley 6:33
That's about it. Yeah, I got to the hospital. I was on four shots a day. I didn't know what a pump was. I didn't know what a Dexcom Oh, you know Dexcom was a thing then.

Scott Benner 6:42
It wasn't back then. I don't think

Tracy Beasley 6:46
right so I had no idea what a Dexcom was or nobody did. I was on four shots a day for six months. And the prawns with you me my parents got pretty tired to me just having four shots a day because no growing up I was trying to get my white back and everything in a shower just to be just eaten. I'm just ham and cheese just no no carb diet for snacks and it's pretty hard when you're trying to gain your weight that

Scott Benner 7:17
trace was that were you using a slow acting insulin to

Tracy Beasley 7:21
or reason a fast that it was pretty much like my meals.

Scott Benner 7:27
Okay, but they didn't give you a Basie

Tracy Beasley 7:30
I believe yesterday, I believe they did. Okay. Then at night, when I took my last shot for the bed, it was a long lasting insulin helped me night.

Scott Benner 7:44
Okay, so the Basal they gave you at night, but they limited you to form. They just limit you to four meals a day.

Tracy Beasley 7:52
Or really, it was just pretty much three, three, not three, not three meals then my last shot was at night before I went to sleep.

Scott Benner 7:59
They wouldn't let you correct a blood sugar. So you couldn't you couldn't do another injection or have a snack or something like that.

Tracy Beasley 8:07
No, sir. Oh,

Scott Benner 8:08
how long did that go on for?

Tracy Beasley 8:10
About six months. Wow. Endo. He introduced me today. We're like we're pre retired a shot. So parents are like, hey, you know, let's see if there's another thing that we can do. And he said, Well, how about a pump? And then once I got my pump? I've been on it ever since? Yeah.

Scott Benner 8:33
Which one? Did you start with?

Tracy Beasley 8:36
Medtronic.

Unknown Speaker 8:36
Are you still had?

Tracy Beasley 8:38
Yeah, I'll still use the Medtronic the nice

Scott Benner 8:42
Wait a man that's that but that's summer must have suck.

Tracy Beasley 8:46
Oh, yeah, it was it was brutal. Having to learn you know, having to change you know, like I'll mirror my first time I ever went to my blood sugar dropped. I remember that. It was the weirdest feeling in the world to know what was happening. Yeah.

Scott Benner 9:01
Well, you're just old enough to really be aware and not really old enough to help yourself a whole lot. It's a me nine is young. Did you try to play baseball that summer?

Tracy Beasley 9:13
I did I think I needed to finish my season I missed about I think three games in those four days I was in the hospital. But then once I got back it was it was hard to get back in the swing of things but then once after a few at bats, I think I got my I got everything back under control figured

Scott Benner 9:30
it out. Yeah. Wow. That's crazy. Alright, so you've been pumping for your almost your whole time. Right? Okay. Do you know I'm gonna stay with them? Let me stay there for a little while longer. So what was it like growing up with diabetes and you know, going to school and how did you guys manage all that?

Tracy Beasley 9:52
When I was the only school at my elementary school at the time, I was the only kid with type one diabetes in the whole school. So it was It was pretty hard at times because you know, growing up, you're like, No, why do I have to go through this? Why do I have to, you know, miss class, go check my blood sugar. And, you know, all my friends are, you know, playing at PE and you know, I'm having to go to my bliss, you're pretty much every 15 minutes, I'm outside just to make sure I'm okay. But then at the time, I was not very happy that I was diagnosed with it. But then now looking back, I wouldn't change it for anything.

Scott Benner 10:30
No kidding. At the time, not happy just because obviously it made you different and gave you something to do when you're plugging your pump around and everything. But why? Why in hindsight, would you not change it?

Tracy Beasley 10:43
Because type one diabetes has given me a platform to help younger kids today and be able to help inspire the next generation of young kids that have that grew up with type one diabetes, I know it's very difficult at first, but then realizing you know, you can do anything you want with this, the with this disease, and this has helped me tremendously and growing up and I've helped, I've been able to help out at diabetes camps growing up in high school and just now being with the University of Alabama baseball team now just giving me a platform a little bit just to help, share and give that to anybody else that has diabetes.

Scott Benner 11:27
Do you have? Have you ever since then, like coming up? Have you ever played with or going to school with or, or managed at a place where there were other people with type one?

Tracy Beasley 11:39
When I finally got to middle school, there's another, um, another kid, about four years younger than me, had type one diabetes in my elementary school. So it was made and it followed. Yeah.

Scott Benner 11:55
Do you guys did you guys become friendly? Yes, sir. Yeah. Do you still know?

Tracy Beasley 12:00
I do.

Scott Benner 12:02
Imagining my How do you end up doing what you're doing for a living? Like, is it you? Is it a sports management degree that leads to this? Or?

Tracy Beasley 12:12
Yes, sir. Um, it's actually a funny story. I actually stopped playing baseball when I was about 10 or 11 years old. Because I played football and basketball as well. And I'll just thought baseball was probably the most boring out of all three, just a lot of standing around. And no football and basketball, it's pretty much high, hot tempo going up and down court. You know, you get the baseball and it's just, you know, a lot of just standing around a lot, a lot of times, but then I actually must be only into my senior year of high school. No, I really didn't know what I knew I was gonna go to school, but I just didn't know what I was going to go for. But I knew I was going to go to junior college because I had I went to the small high school, I didn't have all the credits or anything like that for, I guess the university yet. So I knew I had to go to junior college first and Junior College helped me tremendously. Um, so my junior college, I went to bevel State Community College and PhET, Alabama. They go into my senior year of high school, they didn't have sports at all in 2011. They shut down all sports teams. I still don't know the reason why that happened or anything. But they shut down all sports in 2011. And then 2017. They said they're bringing all sports back. So my mom, she teaches math at bubble state. And she knew the the head baseball coach, that was you want to be the coach, my freshman year of college and he was like, he came out to my mom one day, it was like, Hey, what's your son doing next year? She is? Well, he's coming here. But I think he's just going to do school and work probably the thing about it, but he was like, Well, how would you like to be my former baseball managers? Well, then that's how it played out. Like, I went to junior college for two years. You know, I was out out of baseball for probably about 778 years. And you know, baseball is a game where you have I mean, there's just a ton of stuff that you have to be in the game to know about. And I was I was very far behind. But then that will stay. They helped me tremendously learn about the game more. They helped me basically start my career off and I got free school for two and a half years. And it was it was awesome.

Scott Benner 14:45
Oh, wow. Oh, good. Because you worked for the school technically.

Tracy Beasley 14:49
Yes, sir. I worked for the team and it was a full ride scholarship and I took it and yeah, the best thing that happened for me at the time,

Scott Benner 14:56
no kidding. That's a wonderful that it really is. And then after you finished up there. You went and did two more years somewhere else.

Tracy Beasley 15:04
I actually I went, I started I went to Alabama. Yes, I went to University of Alabama and I got in touch with their director of operations. A jack Cale. He's, he's awesome. He's one of my bosses were with the team and he I got in touch with him. And now I'm this my second year with the University of Alabama and so

Scott Benner 15:27
so you working and going at the same time?

Tracy Beasley 15:31
Yes, sir. So I'm the baseball manager slash clubhouse clubhouse guy, so I'll make sure everything inside but the facility and clubhouse their thing is stocked up with food, protein shakes, I help. I help out with the equipment operations as well. I put out your help out, put jerseys out before games. help out with laundry schedules. And I do laundry for the team. And

Scott Benner 15:59
at the same time, you're working on your degree. Same time working on my degree. Yes, it's excellent. But you got to get through school without on anybody. Nickel. Huh? Right. Sorry. Take that for

Tracy Beasley 16:11
me. Yeah, a lot of work. But at the same time I have this has been the most enjoyable two years of my entire life. Like growing up. I grew up in Tuscaloosa. I mean, I went to probably I've been to 100 football games, 100 basketball games, 100, baseball, softball games, and just growing up llamando was never to make it like pro it was always to be like, either play for Alabama, or work with Alabama athletics. If that was my goal. That's so I'm, I'm living the dream.

Scott Benner 16:44
Yeah, choice. That's, that's well done, man. Like it really is. It's, um, I have friends locally, whose son really wants to do what you're doing, you know. And freshman year, he showed up at his college and went right to the baseball stadium and sat outside the gate, just sat there and watched practice. And he did it day after day until somebody walked up to him and said, Son, what are you? What are you doing here? You know, and he's like, I won't work for the team, you know, and, and now he does, it's, uh, he really, he started off by just, he picked any baseballs that went on the stadium, he picked them out and bring them back. And then one day, they were like, Well, hell, if he wants to do it, let him in the stadium to do it, you know, and then it just, he just built a relationship with people and and got it done. It's, it's not a common pathway to something. But if you want to do something or not, you find a way to do it, you know?

Tracy Beasley 17:38
Right. And you, you make as many connections as possible, no matter where you start out. I mean, I started at a junior in college program that my summer of my senior year, we were out building, batting cages by hand and putting up the outfield fence by ourselves because they didn't have a team for six years that we had built pretty much build everything back up from scratch, right? You must have raked a lot of dirt. We will lie it was a lot of work. But now they now if I go back to a game or something I look and be like, Wow, man, I I helped put this thing back together. So that's probably the most satisfying thing in my entire life was the hill. Yeah, got programmed back up.

Scott Benner 18:21
And countless boys will play on that field for years. You know, and, and you had a part in it. i We used to drive through town My father grew up in and he'd point to a restaurant. And he'd say that when he was in high school, they were building that restaurant and he worked there, and he could tell how proud he was that the building stood there and he had something to do with it. You know? That's really cool. He that's, that's excellent. Hey, did you um, Arkansas, Alabama pretty close together. Were you aware of Patrick when he was diagnosed when he was playing for the Razorbacks?

So you've decided that you don't want to do injections anymore. You don't want to carry a pen, and you want a pump, but you don't know which one. And it feels daunting, I would imagine to just pick one. Well, because what if you're wrong, right? You don't want to start this big whole process with something and then find out I don't like this. That I think is just one of the reasons why on the pod offers a test drive. Actually, you may be eligible for a free 30 day trial of the Omni pod Dash. And there is but one way to find out. You get on your little browser machine that computer bits maybe even your phone and go to Omni pod.com Ford slash juice box. That's all you have to do. You go there to find out if you're eligible for a free 30 day trial the Omni pod dash 30 days will give you more than enough time to decide if you like the Omni pod. And if you don't, it's Cool, no big deal. But if you do, and I think you will, it is very simple to keep the whole process going just like that. You've made a decision, made sure it was the right decision and moved forward. Look at you. You're an adult. Well done. omnipod.com forward slash juicebox. Give it a whirl. See if tubeless insulin pumping is for you. I mean, how could it not be right? No tubes, you can swim and bave participate in sports and other activities all without ever taking off your pump. That's not something you can do with the tube pump. But you can with the Omni pod. For full safety risk information and free child terms and conditions. You can also visit omnipod.com forward slash juice box. Alright, now you know what pump you're getting. You need something to go with it right? You don't just go out and buy a new bag, you get shoes too. Am I wrong? Of course, I'm not wrong. Dexcom. That's what you want a continuous glucose monitor, you want to be able to see the speed, direction and number of your blood sugar at a glance on your Dexcom receiver or your Android or iPhone. This seems obvious to me. But maybe it isn't to you, because maybe you don't know about it. But you could know about it, you could go to my link dexcom.com forward slash juice box. I'm going to tell you how we use the Dexcom. Tonight, a couple different ways Arden came home from school, she wasn't feeling well. And she took a nap, we were able to make adjustments to her blood sugar while she was napping that allowed her to sleep for an extended period of time, with a nice stable blood sugar could do that, because we could see the data coming back from her Dexcom. Later, when she woke up, she had some sort of a weird spike in her blood sugar that we didn't understand. I don't know where it came from is what I'm telling you. And we were able to aggressively correct it and get it back down without causing a low. We did that with the data that we have from her Dexcom. Those are some high level ideas. But day to day, just seeing your blood sugar and how it reacts to insulin and food. It informs you, it allows you to understand the bigger picture. And when that happens, managing insulin can begin to feel intuitive, you can start to see what's about to happen, and get ahead of it. Not only that, but Dexcom has alarms and alerts that you can set that help you understand when your blood sugar is rising or falling. And up to 10 people can follow a Dexcom that could be your spouse, the school nurse, your mom, your dad, whoever dexcom.com forward slash juicebox. Do yourself a favor. Go take a look.

Tracy Beasley 22:59
Oh, funny story about that. So last year, we played at Arkansas, but since it was my first year with a team. I didn't get to go to travel to all the road trips. I only got to but I didn't get good Arkansas. So that Friday night opening game of the series, me and my girlfriend are here at my house. We're watching the game. And all of a sudden I do like a little story behind Patrick. And he's pitching his first game in the series and they talk about him being a type one diabetic and everything else. And we're like, oh, look, he's he's diabetic. And it's it's pretty cool to be like, Oh, wow, like he's like he's like me. So then after that story, I reached out to Patrick on Twitter just being like, Hey, I heard about you being a type one diabetic. I think it's awesome that you're, you know, you're getting the pitch and the best conference in the whole entire country. And I wish you the best of luck. And me and Patrick actually were diagnosed on the same day just 13 days apart. 13 years apart.

Scott Benner 24:03
No kidding. You know, I was I was just talking to him last night. It's the only reason why it's in my head. So that's crazy. I had no idea.

Tracy Beasley 24:13
And his blood sugar I believe he said on your show his blood sugar was 535 and Ma was 536.

Scott Benner 24:22
Yeah, one just want to add one after just one after one year. One. One point. It's a that's a small world situation there that really is I just he messaged me last night. He wants to come back on the show and I want to I owe him a message back and he's in my head and you know me, I'm like, I'm sitting here you're talking. I'm like, I think Arkansas and Alabama are pretty close to each other. I'll try to picture try to picture the map in my head before I asked you and I was like they're just one state apart or two maybe. So that's crazy. I just, I mean there's nothing like if you're gonna play college baseball. Playing in the south is a It's just a dream come true. It really is. I know, for a number of reasons, it was hard for my son because they don't really reach too far north for players and, and he places he got, he got a couple of, of offers down south to play D one ball. But they weren't the schools were so small, and they didn't, they didn't hold up academically to what he wanted. And, you know, you should have seen us sitting here, you know, with a 16 and 17 year old kid telling him like, I can't let you go there and play baseball, like you're not gonna, I need you to go somewhere where you're going to get, you know, a degree that people are going to look at and think well, that's, that's a good reason to hire you one day, you know, and he could never get into the, you know, you couldn't get the bigger schools to, to offer him. But he got a lot of the smaller ones. And in the end, the argument was down to I just want to go down where it's warm and play. You know, like, it would seem so important, and we hold him back from that I'm sure he's probably still mad at us to some degree. But it's, uh, you know, it's, it's really, if you play baseball, you know, you're in the part of the country where you want to be. That's for certain. So can you talk a little bit about what it was what it's like to enjoy a game have played it when you were little and be around it now but not be a player? Do you feel that brotherhood? Or do you feel on the outside of it? Do you feel like management? Or do you feel like part of the team when you're there?

Tracy Beasley 26:32
A little bit of both, to be honest with you, um, I know, everybody on the team and they treat me just like anybody else. I mean, though, me, we go eat dinner together at the dining hall. We all sit together. I help out with the equipment. So they I'm the guy they come to and asked for a new pair of batting gloves if they need it. Yeah, during baseball games, I help out with the umpire like I go get, I'll get foul balls. If they hit it to the backstop. I'm the guy that goes and runs out and gets it then come right back into the dugout. During like when team switching innings, I go out and umpire but I need three more baseballs. I give it out. I give more and then Fievel I can't get a drink of water and I go out and give them a drink of water then it's back to the dugout.

Scott Benner 27:22
Trace when do you start in sleep?

Tracy Beasley 27:26
is anytime you have a little bit of time. Like we played last night I got home about 730 and it was I had a slot to assignments due and you have to just time management is very key.

Scott Benner 27:39
I would imagine you still have that girlfriend. Do you ever get to see her?

Tracy Beasley 27:42
Oh, yes, sir. Awesome. Okay.

Scott Benner 27:45
Trying to figure out where you're making time. Because a D one schedule you guys are gonna play when you play 50 games that the 66 and you're already 10 in because it's warm there already right?

Tracy Beasley 27:59
Yes, sir. In Yes. Last weekend, we played at the University of Texas, which was awesome atmosphere.

Scott Benner 28:05
And your your traveling bus trips, couple three hours.

Tracy Beasley 28:10
Texas was 10 and a half for me and the other managers. But here's the thing about that, though, like growing up now we can talk about that for the rest of our lives. But hey, you remember that time we drove two and a half hours to debt system? Two and a half back? So

Scott Benner 28:24
yeah. My Sunday night. We left Virginia. My son was playing in Virginia. And we laughed and drove away and the bus left and they went a different direction. And about an hour later I get a text bus broke down. Oh man, like, I was like, oh, and he goes new bus gonna not get here for three hours. And I was like, What do you guys gonna do? And he's like, I have no idea. So they got the bus started enough to drive it like another like 1000 feet. And they could walk and he's like, the entire team is in a Chili's right? And he said they spent like three hours in there. And he was irritated because he's tired and he wanted to get back and everything but at the same time I take your point I bet you 20 years from now he's gonna remember that bus breaking down and sit in that restaurant with those guys you know?

Tracy Beasley 29:19
Right? This just traveling and everything with the team is one of the biggest blessings I've ever had in my lifetime just know you like you can look on YouTube and see like Day in the Life videos of teams and everything and that was me growing up I was like, man I wonder what it's like to travel there all these college teams and professional teams now I'm getting to live in it's like wow, like I get to do this.

Scott Benner 29:46
Wow, that's really great. You think Is your goal to stay in college doing what you do?

Tracy Beasley 29:52
Yes, sir. Ma, um, no, whatever God has for me. That's why I'm going to do and no If it's college or professional, no, I'm fine with both. But, you know, whatever God's plan for me is I'm willing to do what's what's

Scott Benner 30:08
wonderful, what's best. So let's talk about your diabetes a little bit. I mean, you have, I mean, we've described now, an active day, you know, you're not just like, up and awake, you're moving. I'm assuming it's warm in Alabama. You know, like, how do you manage day to day? Are you eating on a schedule? Is the pump? Are you using a 670? G? Metro?

Tracy Beasley 30:34
I have a mini man. Oh, okay. Yes, sir. So 70 G, it's a mini mad is that one. Then also use the Dexcom G set. That's probably my best friend. Just to I'm moving around so much. And then I'm just no look on my phone. But I was gonna bless you right now, the knocking, you know, just saying mail to give corrections and that sort of thing.

Scott Benner 31:04
So you're just just paying attention, like you're just nothing special, you just living your life? Listen, trace, the reason I bring it up is because I think you're a great example, for people who were afraid that maybe they are their children, you know, can't be as active with type one. But it sounds to me like you get a minimum amount of sleep, you're going to classes, you're you know, you're going from being incredibly active running around in a baseball game to sit in on a bus for 10 hours. And you're not in Are you having any trouble managing or things going? Okay.

Tracy Beasley 31:37
You know, I'm feeling like, I'm just like, every other type one diabetic, and I have my bad days, I have my good days, you know, some days, you know, I'm, I mean, yesterday before game, dropped to 85. But then all of a sudden, went got a G from the athletic trainer. And then after that I was good to go. So I mean, it's just, you just keep going. Just keep going. Yeah, thing just, no, I'm not gonna sit out for for the team, or I'm willing to do whatever they need me to do get job done.

Scott Benner 32:09
Yeah, I enjoy your attitude about this. And that's why I wanted to bring it up. So I think sometimes people can kind of get in their own heads a little bit, you know, and scare themselves, but it's doable. It's very doable. I mean, listen, we just brought up Patrick Patrick's. Yesterday was his first day of spring training. He's in spring training for the Tampa Bay Rays throwing a baseball, that's not easy. And, and he's doing it you're doing the thing you're doing. There's plenty of people out there with type one who are living lives that are, you know, vibrant. And, and I wouldn't want other people to think it wasn't possible, you know,

Tracy Beasley 32:49
right. Now you can do anybody that's watching this. Now you can do anything with this disease. I mean, anything you put your mind to, you can get your garlis of any circumstance.

Scott Benner 33:00
I agree. You just got to be flexible. Right? Arden started a um, she has to take, what am I thinking of? Oh, my God steroid pack for six days. Well, yesterday, she took the, you know, took the first few pills, and then the next couple in the first day, take a lot of them. And I'd say inside of about four hours, I had to double her Basal. Like her Basal rate is like two units an hour right now, which is is literally doubled from where it was. And I wasn't even scared of it when the doctor gave it to us. She's like, her blood sugar is going to be high while she's on this thyroid pack. And I said No, it isn't. I was like, Oh, I'll take care of it. Don't worry. And and he come to realize while you're doing it, I mean, it's a leap of faith to double someone's Basal insulin, you know, but I just turned it up. It didn't work. I turned it up again. And I just kept pushing it up until I got it to a place where it was it was holding where I wanted it to be and I know that would be a hard thing for most people to do most people would probably listen to the doctrine sale my blood sugar's just gonna be crazy for the next few days, but I thought I don't care if it's I don't care if it's pizza, or it's wrong around the heat or it's a steroid pack. There's an amount of insulin somewhere that's going to work for this you know, and I was determined to find it last night. I did i It's really terrific what you're doing any other people in your family have type one or other autoimmune diseases.

Tracy Beasley 34:28
The last person I can think of that had type one diabetes in my family was my dad's first cousin.

Scott Benner 34:34
I probably took your parents by surprise and I would imagine

Tracy Beasley 34:37
Oh, it was like a total just total of 360 just the mean. I was a healthy little boy and all sudden bang just

Scott Benner 34:46
Yeah, little skeleton playing baseball. What about um, thyroid or celiac or anything like that? No, sir. No. Okay. No more sweet tea. Ptrace

Tracy Beasley 35:00
No, no. Mallos yellow cap is my favorite.

Scott Benner 35:06
I'll tell you, you know what? We were just we were just in Georgia recently. My daughter's thinking to go into college. And so would you drive in South and there's somewhere you hit. I didn't exactly remember where it was, but somewhere you hit and once you go into a store to buy a drink, the concept of diet is gone. They don't I mean, like they don't this the stores don't carry a ton of like diet versions of things or no, it's, it's interesting, especially iced tea. But you say you have one my What is it called?

Tracy Beasley 35:37
It's called Milo's. Pylos Okay, I'll look for that. It's a yellow cap. This uh, it has a it's yellow because it has a Splenda sweetener in it. And it's, I've been on to it on that ever since I've been diagnosed and it's no know all this stuff now with the Nio. Thanks for college athletes Mallos if you're listening to this, I would love to have nio deal. I don't know if they would sign a manager but you know, hey, I'm willing to do change it up a little

Scott Benner 36:09
bit. You're willing to run out get those baseballs holding an iced tea.

Tracy Beasley 36:14
Hey, whatever, whatever it takes.

Scott Benner 36:17
Trace trying to get through college everybody he needs. He needs somebody to come along and help out a little bit. Now I was just we were somewhere middle that like I mean, we drove down. Man, it must have taken us 14 or 15 hours to get the Georgia because we hit traffic at some point. And we stopped somewhere where I was so dizzy by then. Like I went into the store and Arden and I went in to get a drink and and use the bathroom and and I said to the guy who registered us like where are we? Like I don't even know what state I'm in, you know? And I think he said he I think we were in South Carolina at the time. And I said desert like can we get a diet drink here? And he goes no, sir. Like, okay, so we grabbed some bottles of water and we took off. But yeah, it was really interesting. Wow. So um, do you ever feel like I mean, you said you one you met one kid in school. Nobody in your family has diabetes. No one on the team has at the moment. I feel like that, like xever Feel isolating, or do you ever feel alone? Or do you not think about it like that?

Tracy Beasley 37:22
I really don't think about like that, you know, I'm just I just feel like I'm just one of the guys on the team. A little bit, you know, I mean, obviously, you know, I have this disease, I have to take care of every single day and make sure I'm healthy but players and everything else. You know, they'll see me snacking know if I'm low during practice to buy you good. But yeah, I'm good. Just give me about five minutes and I'll be right back out and yes, but they they firstly, have team practice last year. No, I was introduced myself. All the players and everything. And they're, you know, they saw my comp and they're like, you know, what's that? And so the only story a few years ago album baseball had a type one diabetic on the team. His name was Keith hokum, and he played football and baseball for Alabama. And he was probably one of the best baseball players like that a long time.

Scott Benner 38:19
And so the got some of the guys were aware of it or just what, in general.

Tracy Beasley 38:24
They were just like they were aware of a little bit. They just didn't really know a lot about it. Yeah, but but some were Maryland. Law member Keith hokum Didn't he have diabetes a lot? Yeah, that's, you know, I've been fortunate enough to meet Keith before and he's awesome.

Scott Benner 38:39
He's also huge. I just Googled him real quick.

Tracy Beasley 38:42
Yeah, he's, he's a big boy.

Scott Benner 38:45
I say he's a mountain. Look at him. She's six, four to 35. He was listed at his last year now. That's, that's big. So So you said a second ago, if you they see you eating something or doing something there's some concern guys passed by you they check on you stuff like that.

Tracy Beasley 39:04
Yes, sir. Yeah, even the other managers say they're like, Hey, I'm here one day like my pumps, I just fell out my arm they're like, hey, you need to go and I was like, yeah, just probably right back and I went and put a new side in then I'll drive back to practice.

Scott Benner 39:18
You ever grab a glove and shag flies or try to jump into BP?

Tracy Beasley 39:23
Oh, yes, sir. I've yet to share BP us being managers we actually get to customize our own glove with within what the team so I've got been able to get two gloves. And last year, this year, I got outfield glove just be able to shag better so it's awesome. It's x.

Scott Benner 39:40
I know. I know. I'm just thinking about my son. He would just like, you know, if he wasn't on the team. I wonder. I always wonder about baseball. Like if you know if and when he has to stop playing like if he'll try to find a connection back to it. Or if if it'll be painful not to be able to play you know, like I always wonder how that's Gotta go. Yeah, you see a lot of pro athletes that kind of, some of them spin out of control when they when they lose the ability to be, you know, be involved with a team and I think they're incredibly competitive people and then there's nowhere to put that competitive thing. You know, it's a, it can be difficult to leave it behind. I just wonder, I was just thinking for you, man, it just must feel like Little League all day long. You know, just exciting.

Tracy Beasley 40:27
Oh, it's awesome. Like, I remember my first law opening day last year, the 2021 season now it's just like in shock, just to be like, Wow, I'm in the dugout.

Scott Benner 40:37
Yeah, people attend those games to their well attended games, right?

Tracy Beasley 40:42
Oh, yes, sir. We, especially when we play start playing SEC themes. Last year when we we play Auburn, three game series. It was it was a big crowd every night we played.

Scott Benner 40:55
I have to tell you, I just remembered something. So I told you before we started playing, or we first started recording playing that my son took off a semester during COVID. And he and a number of his teammates went out to Wyoming and they snowboarded for a couple of weeks. And then they made their way back home. But they they did a big long loop south and then came back up the East Coast. And as I'm sitting here, I think they stopped in Alabama and saw a baseball game. I well, I am now sitting here thinking that I have a photo of coal in the stands. Write up the first baseline at that at one of those games. I'm gonna have to go back and look when I'm done, because I'm certain they stopped at a game. And now I really think it was with you guys. In that intro, wow. Yeah. very random. I think they just they went through Texas had barbecue, and then they started heading back up, coming north and one of their friends is a student there and got them tickets. And that's how the in who kidding. That is what happened. How about that? So I, you you mix and match. You're using the Medtronic pump with the Dexcom. So you're not using an algorithm. But do you think about ever doing that?

Tracy Beasley 42:15
Yes, I believe. Um, I would like to get the T slim here in a few years. That's like one of my main goals, because I said the Dexcom and the tastes lamb torta like, connect together, like work together. They do. Yeah. So that's something I've been very interested in and getting, but I have like two more years left on this pump I have now. So I feel like just using these two years up, and then once that's over, just move to the T slim.

Scott Benner 42:41
Okay, because you're going to try the app. I'll tell you Arden's about the startup using the Omni pod version of an algorithm. And we're very excited to give it a try. Why do you see it like it'll fry your mind the first time like, you notice on your graph, like you're trying to get low, and the pump takes away your Basal, you know, and catches the low before it happens. And suddenly you don't need a snack, man, you're gonna be like, you're gonna be in heaven. You're gonna think that's the most amazing thing that's ever happened. I'll tell you. It's a it really is something else. It feels like magic. While it's happening. It really does. Well, that sounds awesome. Yeah, I'm telling you, you're gonna love it. Medtronic makers want to, but you would need to use their CGM with it. Dexcom works with tandem control IQ. Dexcom works with Omni pod five. So you'd have you have more opportunities there to choose pumps. Because the interoperability of them, but I'm telling you, man, you're gonna, you're gonna think you think you died went to heaven when you see that? It's pretty great. Do you? Um, you're young though, man. Right? How old are you? I'm 2323. You're not thinking about having kids, right?

Tracy Beasley 43:54
Oh, no, no, no, not right now. No,

Scott Benner 43:58
I was gonna ask you if you ever thought about diabetes and having children, but then I realized how old you are. And I thought he hasn't thought about having kids once.

Tracy Beasley 44:04
Oh, no, I, I graduate in August with my undergrad, then I'll have five classes left in my graduate program that I'm in. So then after that, it will be no trying to find a job in MMA career that I love. And then after that, you know, just try to step by steps, you know?

Scott Benner 44:24
Yeah, no, I understand. I guess it's it's a tough, a tough world when you pick a job that there's not that many opportunities for, right. I mean, honestly, there's as many college baseball teams as there are. I mean, honestly, at most colleges, your job might not even exist, right because they don't have the budget for it. So it's a finite amount of colleges that that run the way Alabama does. And then minor league and Major League Baseball teams, right. Those are options.

Tracy Beasley 44:53
Yes, are pretty much. No, just Yes. But then again, going back to what I said again, Just know you just got to make connections and you know, somebody will know somebody and then be like, No, I got, hey, I have a job opening. Do you know anybody? And no, well, I got some by 40 right now just trying to make as many connections as possible when you're in college and bust your tail every single day for him and just do whatever that needs to be done.

Scott Benner 45:23
I would guess too, you could, you could get it immediately baseball and do other sports too, right? No reason why.

Tracy Beasley 45:29
Yes, sir. What's the equipment operations and everything I'm willing to do? You know, man, I'm a big basketball fan, too. So you know, I love to you know, help out with basketball. Also, softball, you know, it's just like baseball, but smaller field and everything. And obviously, you know, girls play it. So

Scott Benner 45:48
my son met a girl once in he was playing in Georgia. And he's like, the guys are going down to the we're gonna hang out in the lobby of the hotel, and I was like, whatever. It's fine to me. I just slept. You know what I mean? Trey says, I'm old. Like, you drag me around to a cold baseball fields. I'm pretty much done. And, and he comes back up and he says, I Oh, my god is this Alabama? Two is the story about Alabama. He comes back up he goes, I just met a girl who is going to pitch it Alabama one day. She's big, tall, blonde girl. And then she ended up being their main I'm going to look she ended up being their main starter. I think recently, because he's my son, still a senior, they were the same age. But all he could talk about when he came back up was how tall she was. He's like, she's so tall. I wish I was that tall. And he was young back then they were still in high school. Down there playing and there was an overlap. Like sometimes, you know, there's people don't know. But like, there's places where people play baseball, and there's a week of softball, and then their softball clears out. And then there's a week of baseball and you know, high school students and I don't know her name. I feel badly I'm not going to come up with it. But he was just I just remember I'm talking about like, how tall this girl was. So do you know do you know they're there's who are their weekend starters? That's softball. Do you know?

Tracy Beasley 47:15
I know. One. Montana files.

Scott Benner 47:20
I'm looking now. I see her got where I bet you that's her. I bet you that as her? I'm gonna ask him later. Yeah, it just, I don't I just remember him being like 16 years old and coming down. He's like, this girl's over six feet tall. And it's funny. And she says she's gonna go to Alabama and pitch and then, you know, three, four years later, he's like that girl I met like he, she starts for them. And I was like, that's really cool. And people don't understand either like that, you know, this example, I don't know, specifics about but, you know, every school tells about 10 kids that are going to come pitch, you know, and they all show up. And you know, a couple of them pitch and a couple of them never ended up doing it. And so it's a it's a, it's a big leap to make between being a prospect as high school student. And actually playing in the game as a as a college student. It's a it's not a, you know, for anybody listening who have little kids, you know, it probably seems difficult just to think to get a college to be interested in to take your kid. And it is is hard. But it was very difficult. Yeah, you don't just magically play once you show up. That's that's not how it works, either. So it's, I'll tell you what, I would imagine that the you take humility out of this almost more than anything else, you know, to make it that far. And we've talked about it a number of times that I don't know if you're aware of this, but I think it's the number at least when my son was was, was a little kid playing Little League. Every year in America, 4 million boys start playing Little League baseball. And when those boys turn 18 and go to college, 9000 of them go on to play college baseball. That's it like those, that's how the numbers break down. And then you get there. You still might not play. You know, it's it's a heck of a climb. You know? Can you talk about that a little bit like watching it from your perspective. It means somebody not that I would want you to say their name, but someone pops into your head hard worker deserves to be on the field. There's no space for them, right?

Tracy Beasley 49:34
Yeah, obviously, we have a lot of guys in our team that's like that. Um, yeah, that comes to mind is our shortstop Jim Jarvis is started at shortstop for us since he was a freshman. And he is the probably one of the hardest workers I've ever seen. Um, ever since I've been in college. I mean, he comes up he shows. He comes to work every day. He comes to practice every day and he's worried He's ready to work. I mean, there's no. And he's always happy to like me. He's never I've never seen him mad or anything like that. I mean, he, he enjoys being at the baseball field every day. Yeah. And that's somebody that you want to be around too. Because, you know, baseball, you know, you play pretty much every other day. Yeah, it's, and you just have to be like the kid in the candy shop every day. Because how hard the season is. And, you know, like, these guys are getting to live their dream right now playing what for the University of Alabama and us as managers as well. We're getting to live the dream of being with a team.

Scott Benner 50:37
No, I listen, for people who don't know, I can tell you right now, if I think my son would be proud to tell you he was the seventh outfielder at Alabama, you know what I mean? Like, it's, there's guys there that that might never even sniff the field who are still going to have that same exact experience of, of the camaraderie and the the feeling of being there. It's, yeah, now there's some there's some places you want to play baseball in college, and Alabama is one of them. That's for sure. Yes, sir. Yeah, no kidding. So what made you want to come on? Like you just kind of want to kind of be a shining light for people?

Tracy Beasley 51:15
Yes, sir. That's pretty much it just to be know, let other young kids today know that, you know, they can do whatever they want to with this disease. And, you know, I know some days are harder than others. But I know that just keep pushing, keep, keep fighting. And you never know what the plans God has for you. And you can just do whatever you put your mind to. And I never thought in a million years, if you told me, Hey, you're going to quit playing baseball at 10. But then your own go and college and be a baseball manager, your whole college career. I've been like, You're crazy. I never saw me. Growing up, you know, growing up here watching Alabama football my whole life. You know, that's the team that I wanted to play for. But obviously, it just just wasn't for me. But you know, and that's okay to my sister. She was in the million dollar band here as a crypto Unit here at the University of Alabama. And then my brother in law. He played football here at the at Alabama, so I got to experience that side of it as well. But it was awesome.

Scott Benner 52:23
No. is Was there ever a time where you thought that the diabetes could hold you back? Because it's something you had to battle through? Did you just set your mind to it right away?

Tracy Beasley 52:32
I just set my mind to it right away. You know, I'm all grown up. I'll watch the Jay Cutler play for the for the Chicago Bears. I know he will start one day. And also, Nick Jonas, I heard he was diabet. So you know, I saw I'll say these two guys, you know, they're doing what they love to do. So why not? Do what I want to do with it?

Scott Benner 52:55
I see. That's just common sense to me. I think that's fantastic that it hit you that way. Because you know, there aren't I mean, you're making the point you want to you want to let people know they can do whatever they want to do because it can be a burden to some people. And it does weigh them down sometimes to the point where they lose faith or give up you know, I'm not sure how to think of it. But yeah, I don't see. I don't see how it can stop you if if if you but you still need to understand it right? Like it's easy to say like, I'm not going to give up but you know if your blood sugar's going from 40 to 400 all day long. It pretty hard to battle through that. Like you have to have you have to have a firm understanding of it and and be able to, you know, to manage it. Well to give yourself that chance. Do you listen to this podcast with any regularity?

Tracy Beasley 53:48
Yes, I do. When once you had Patrick on I was Oh, I gotta listen to this. I gotta listen to this one.

Scott Benner 53:55
I hooked you with baseball. You know, I get a lot of later I get a lot of letters from mom or like gets enough for the baseball. So like, Well, yeah, I like baseball. So you got to listen to it sometimes though. But I'm glad that that found you like that. Have you ever tried like the pro tip episodes or anything like that the management stuff? Yes. Or has it been? Has it had any value for you?

Tracy Beasley 54:17
Yes, sir. has been just hearing about you know, different things that you know people do and no just try to do it in my in my time and just do it on my time too. So just whatever try to you know, little tweaks here and there just to say like, if this helps, or if it don't, you know,

Scott Benner 54:36
what do you shoot for? Like, what's your range that you try to stay in?

Tracy Beasley 54:41
I try to stay in between 120 to about 175 Okay, I feel like that's where like, light Oh, my best during games and everything to

Scott Benner 54:54
you because you said something earlier that caught my attention you you talked about low being at five Like you said, you got low, you're at 85. And I thought, Oh, that's not low for for us, but I thought maybe it might be for you. So that makes that make sense. Boy, I'll tell you, you would really you are going to like those algorithms because they, it's going to just shoot for like 110 in that range there. And it's gonna do a pretty good job of holding you there. I bet you an algorithm would just just based off of what you said, I'm going to guess that you're a one sees like around six, eight, something like that.

Tracy Beasley 55:28
Ah, last time, it was 7373. Okay, yeah,

Scott Benner 55:32
that that space, that's what I'm talking about right there. I bet you that algorithm is gonna move you down. Without making you lower than you're comfortable with. I bet you that algorithm gets you more down to like, probably the mid to low sixes. I'd bet that'd be that'd be a big deal for you.

Tracy Beasley 55:48
Oh, it'd be awesome. I would love to get down to the sixes.

Scott Benner 55:51
Yeah, it's um, so let me ask you a question. So do you stay a little higher? Because you're afraid of getting lower? Or do you stay a little higher? Because if you don't, you absolutely are going to get lower?

Tracy Beasley 56:04
Are their trust a little bit higher than No, not go crazy high? No, but I try to stay life before game my blood sugar's 190. May I'm not going to try to do like, give a correction or anything like that, just because I know if I feel like, if I get into something I'm probably just gonna bomb out during the game. So I feel like you know, being a little bit higher on this is a little bit on the safe side a little bit. But then also at the same time, you know, you got to know like, Hey, I think I need to give a little bit of insulin here before the game or just be like, Hey, I think I'm okay. Just to check it in that.

Scott Benner 56:40
In that scenario, or thing. I'm sorry, I cut you off. But in that scenario, does that 190 Come down on its own with a running around at the game and everything? Yes, sir. Yeah, how far does it come down?

Tracy Beasley 56:54
So yesterday, before game, I was 182. Then after the game, I was 157.

Scott Benner 57:00
Okay, well, then trace, let me be the one to say do that. I bet if you were 150, before the game, that after the game, you'd be 120.

Tracy Beasley 57:08
Probably so yeah. I'm, uh,

Scott Benner 57:10
I don't want to be the reason why the umpire doesn't have any balls. But I do. I do want to say that there's probably a small correction you could make that would mean, even if you just chop 25 points out of it. The mean, there's a small correction you can make that would do that. That I don't think would, would cause a low you don't I mean, right. Yeah. It's interesting. How much you Why can I ask?

Tracy Beasley 57:37
away? 185? What's your Basal rate? Level about? I think it's 1.2.

Scott Benner 57:45
Okay. 1.2. Hmm. And if so, when you sit stable away from food and Bolus, so overnight, is I guess my best question like overnight, where do you sit stable at?

Tracy Beasley 58:00
Just aim about around 160 to 190? A little bit.

Scott Benner 58:08
Alright, trace the next time you have a day off, where you don't have to do something the next day, make your Basal like 1.4 and see what happens. Overnight, just see what happens. I bet you there's a spot in there, where you could cut some points out of your blood sugar. I know you didn't ask me, I apologize. I'm not just giving you like my my thoughts. And I didn't ask you if you wanted them. But we got to fill time tray. So you have to listen to me. So if you if you just if you just turn it up the tiniest bit, I think it's possible that you could take some of those numbers out still stay in the range you mean to be in and maybe cut your agency under seven without causing you the loads that you're worried about while you're while you're working. But that's I mean, obviously that's up to you. I'm not trying to pressure you. I just think it's possible that that exists. So

Tracy Beasley 58:55
Oh, yes, sir. Notice, I'm gonna do no any tips or anything like that just to stay healthy. So I'm on to that's the whole goal. Right? Right. That's right.

Scott Benner 59:06
Yeah, you work this hard to get this life so that you that you can't live it, you know, so for sure. Alright, well, listen, is there anything that we haven't talked about that you wanted to?

Tracy Beasley 59:17
Um, a little bit? Yeah, about just when I was growing up in high school, I worked to diabetes count called camsell Harris. It's here in the state of Alabama. They have overnight camps they had day counts and out of the camper at first and I became a counselor at the camp and I can honestly say cancel Harris was a big help growing up with type one diabetes. They helped me tremendously.

Scott Benner 59:45
Trace I'm sorry, I know you don't think of yourself as having an accent but I can't hear the the name of the camp spelled for me.

Tracy Beasley 59:52
See a MP. Yep. S E A L E Then Harris, H A. R s

Scott Benner 1:00:05
got it. Camp seal Harris. Two words SCA le A. Okay. Yeah. Okay. Yeah, two words. Oh, it's no big deal for you was a big help for you as a kid?

Tracy Beasley 1:00:19
Yes, sir. It was because like I said, growing up, you know, I didn't really understand why No, I had to go through this every single day. And then I went to, I had a diabetes checkup with my endo one day. And he comes in with to my room and has the locker packet in his hand. And it's about capsule Harris. And he goes a capsule, Harris is bringing their account to the University of Alabama for the first time in having they're trying to have a Tesla day camp. And it's for three days, and it's going to be at the university. And once I went, it was probably the best three days my entire life. That's great.

Scott Benner 1:01:00
I have it here. It's camp seal with an E. I'm going to spell it a second. harris.org. So camp, s e a, l e. H, a RR is.org. Yes, sir. That's correct. Cool. Oh, that's very nice of you to spread the word for them. It seems like it meant a lot to you. Did you meet people there that you still know?

Tracy Beasley 1:01:19
Yes, sir. Amanda, some of the counselors that I met and everything like we're still in a group message.

Scott Benner 1:01:26
As many years later,

Tracy Beasley 1:01:28
many years later, me. And I've been able to still help out a little bit here and there, not as much as I'd like to. But again, at the end of the day, they let's, if I were to one day, win the lottery, I would give a good bit about of money to them just to help out. That's what that's how much they mean to me.

Scott Benner 1:01:47
Yeah. Sounds like it was really impactful to you. Oh, it

Tracy Beasley 1:01:51
was like, that was probably the most when I played football in high school, we got like, the one week off to basically do whatever we wanted play before we started. Fall practice. And that week, I was like, they're like, Oh, you go into the beach? Or, you know, you go into Disney World or someone's like, No, I'm going to diabetes camp.

Scott Benner 1:02:15
I'm going to diabetes camp.

Tracy Beasley 1:02:18
They're like, why don't you go there? I'm like, oh, it's like because there's other diabetes there. I mean, why would you why would you not go there?

Scott Benner 1:02:24
Yeah, you get to finally meet people have your you know, your similar situation, right? It's a it's almost impossible. I mean, listen to your as a you know, you're open with your diabetes and you know, you don't hide it and you still you don't meet that many people. You know, it's hard to it's hard to find people that you are the connect with on a level like that.

Tracy Beasley 1:02:45
Right now, I remember the first day of camp that I went to, I was like, Oh my gosh, like there's people that have diabetes, like just like me, and they're having to fight the same battles that I had the fight every day. And it's like, oh, my blood sugar went low last night. Oh, you went low. Oh, I went low too. So it's sort of like that.

Scott Benner 1:03:04
Yeah, there's some common stuff that you get to talk about right? Yeah, no kidding. Hey, I just realized you guys open against Xavier Yes, sir. Boy grew up in my town. I think play centerfield for them. So I just I just realized that now that's crazy. Tracy, I really appreciate you coming on and spending your time with me this morning and sharing all this. I appreciate your reaching out and and the excitement that you have when you're talking about diabetes and being open with other people. I think it's really important.

Tracy Beasley 1:03:38
Yes, sir. I appreciate you having me on Odroid it this my first ever podcast so well, you did reach as you have my own absolutely

Scott Benner 1:03:45
did terrific. And you're smart because you're going to move up on the schedule because I will obviously still want to put you out during baseball season. So you're gonna have to wait too long to hear yourself. Yes, sir. Thank

Tracy Beasley 1:03:56
you. No, thank

Scott Benner 1:03:56
you. Hold on one second. Okay. Stay with me. Okay.

I really love Tracy's story. And I appreciate him coming on here and sharing it. I want to thank Dexcom, makers of the Dexcom G six continuous glucose monitor for sponsoring this episode of the podcast. And I'd also like to thank Omni pod. You can find out about that dexcom@dexcom.com Ford slash juice box and the Omni pod at Omni pod.com forward slash juice box. You may be eligible for a free 30 day supply of the Omni pod dash. There are links in the show notes of your podcast player and links at Juicebox Podcast comm to these and all of the sponsors is this where we say roll tide again. I'll do it Roll Tide. Probably sounds better with a southern accent but I cannot approximate that. So Roll Tide. See just like that. That's all I can do. Hey, if you're looking for those diabetes pro tip episodes, they begin at episode 210. In your podcast player, where you can find them at Juicebox Podcast calm and at diabetes pro tip.com. There are a ton of other series within the podcast off the top of my head defining diabetes, diabetes variables, how we eat after dark algorithm pumping. Hmm, I feel like I'm missing something. You want to stay with me while I look? When I'm gonna look, I have to look at my own website. Don't laugh at me.

I didn't forget anything, either. Good. Well, you're me. Let me think of that. I just fell back in my chair. Don't worry, I'm okay. Well, I'm a bit of a liar. Because I did forget some stuff. There's a pregnancy series, sorry, a big mental mental wellness series, a whole bunch of episodes about fat and protein that had a Bolus for them. There's the defining thyroid series that one I feel bad for missing. I just completed that one. I get so much good feedback from people. And we're working on other series that will help you I think next up, I'm I don't think I actually know because I'm the one doing it. But I'm laying out right now defining celiac series and looking for people to record with about it. So that'll be in the future. But you're talking about right now. So again, I mean, if you're not listening to podcast player, I wish you would follow and subscribe in any audio app. Please don't pay for one you don't have to Spotify. The free version works great Apple podcasts. Amazon music, Google podcasts, there's a ton of them. They're all free. They all work great. You can listen to the podcast for free. You shouldn't even be paying a couple of dollars for a podcast app. You don't have to. I mean, if you have a favorite podcast app, and it cost a couple of dollars. I'm not trying to stand in your way you understand. But I'm just saying, who doesn't have to be any impediment to you getting this information? What else should I talk about here? Oh, you know, what are you in the private Facebook group? You should be Juicebox Podcast type one diabetes, about 23,000 active members right now. Now join is jumping. You want to talk about insulin or watch people talk about insulin, and diabetes and all that comes with it. Head over to Juicebox Podcast, type one diabetes on Facebook, we add about 300 new members every week. It is a really lovely supportive place. Very unlike the internet. And there's something there for you. I promise. Anything else? There's always something else later I get emails from people you're supposed to mention this. He didn't do that. Go do my best here. You don't I mean, I'll remind you again to go to T one D exchange.org. Forward slash juicebox. Fill out the survey. That's a big help to me and to people living with type one. You know, they didn't buy an ad on this episode, but the touch by type one golfing event is coming up really soon touched by type one.org. Head over there and check it out. It's not too late. If you're in the Orlando area, I believe you can still play through what else what else? What else? I didn't have time in the ad to talk about on the pod promise. But it's a real thing. And you should check it out. And now I got to explain it to you. Hold on. All right on the pod. This is a freebie here. I know I talked about getting the dash. And you might be thinking but I really want to get the Omni pod five. So I'm just gonna wait. The truth is you don't have to wait you get on the pod dash tomorrow. And the Omni pod promise says that you can upgrade to Omni pod five for no additional cost as soon as it's available to you and covered by your insurance. That's a pretty great promise. I mean, you could have on the pod dash for two weeks. And then if only pod five was available, you could start the process of switching. There's no impediment. You shouldn't be waiting if that if this is what you want. I think I am beholden to tell you that hold on. This is what happens when I'm not ready to do what I'm supposed to do. I believe that I have to tell you after I say that that I do I have to say that for full safety risk information on the pod promise terms and conditions. You can also visit alibaba.com forward slash juicebox. Okay, now I've done what I'm contractually obligated to do, but it's a big deal for you guys, because I don't know exactly when Omni pod five is gonna be available to you. It could be a month, it could be three months. It could be six months. Like I don't know how the rollout works. You understand? I don't understand the word I'm not in charge of everything. Well What I'm trying to say is I've gotten upset for no reason. You weren't yelling at me, I can't even hear you. What I'm trying to say is, I don't know when it's going to be available. But because you want it and it's coming sometime in the future soon ish is not a reason why you should be sitting around not using an omni pod if you want to. So go ahead and try the on the pod dash, do the free trial, and then loop back around to five when it's ready. What else? I don't know. I'm very ready for winter to be over. It was so cold here today. And it's just it was unseasonably cold, and it was very unpleasant. I didn't like it at all. Oh, I'm getting knee surgery. Do you care? I tore my meniscus.

Anyway, here's what the doctor says to me. He goes 15 minutes surgery. I'm just gonna poke two holes in the knee, clean that thing up. Two days on crutches you'll be back driving and 48 hours, no big deal. That's how he sells it to me in the store. The store in his office. It's the same guy that fixed my shoulder. So I figured, I mean, he didn't do too bad of a job. But that says like, I'll let him try the knee. So anyway, then I get the MRI, you know, confirms that everything for insurance. And he says, you know, no big deal. 15 minutes, poke two holes cleaned up. Just you know, two days on crutches a week icing and elevating and six weeks of PT afterwards. I was like, Where was the icing and elevating and PT talk? Back in the office when you're like, oh, go get an MRI, we'll get this thing fixed up for you in no time. Now, don't get me wrong, doesn't sound bad. I can ice and elevate and, you know, go up the street to a place and bend my knee for a couple of weeks. I'm up for that. I'm young. You know what I mean? I still need to be active. But anyway, I don't know why he undersold the work that I would have to put in upfront and then, you know, once he thought I was, you know, definitely gonna do the surgery. He's like, Oh, did I tell you about the rest? I don't know. Seemed a little disingenuous to me. That's the wrong word. I don't know. I didn't like it didn't seem like anything. I just thought he should have said law up front. Meanwhile, nothing stopping me from getting my knee fix. Because it hurts like a mother. Do you understand? And I can't live like this. So I'm getting this thing fixed up. What else? This is like, this is like I had a folder full of things to say. And I'm just like, clicking through them real quick. And but that's not true. I'm just running through my brain real fast. What else? What else? What else? What else? I don't have anything. I think I'm done. Do you feel good about this? You feel like we've we've done something here. I mean, I appreciate it. Let me thank you real quick for listening for sharing the show with others for leaving those great ratings and reviews my way you do? Everything that you guys do. It means the world to me. That's it. I'm out of here. So you


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