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Podcast Episodes

The Juicebox Podcast is from the writer of the popular diabetes parenting blog Arden's Day and the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad'. Hosted by Scott Benner, the show features intimate conversations of living and parenting with type I diabetes.

Filtering by Category: Dexcom

#612 Diabetes Pro Tip: Female Hormones

Scott Benner

Scott and Jenny Smith, CDE share insights on type 1 diabetes care

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 612 of the Juicebox Podcast. This is also the next episode, the diabetes Pro Tip series.

On this episode of The Juicebox Podcast, Jenny Smith and I are going to be talking extensively about hormones, female hormones, about getting your period about riding the won't say that about shark week. You know that time of the month where your baby box is trying to kill you. And we're not going to just talk about your period, but we're going to talk about the lead up. And afterwards, the entire month really, and what you can expect as your hormones fluctuate and change. Please remember that nothing new here on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. We're becoming bold with insulin. Right now I'm considering putting a ton of euphemisms for a period at the end of this episode. Not sure if I will or not. It's all kind of up in the air. Hey, if you'd like to help out the podcast, head over to t one D exchange.org. Forward slash juicebox. If you're a US resident who has type one, or is the caregiver of someone with type one, I'd love it if you'd fill out their survey. It'll help people with type one diabetes, and it supports the podcast. This episode of The Juicebox Podcast does not have a sponsor. Not that I don't have a sponsor I could put on the podcast that I certainly have. But I just wanted to take this opportunity to remind you about the other diabetes pro tip episodes and some of the other series within the podcast. Can I do that? Will you give me a second? Thank you. At this point, the diabetes Pro Tip series consists of 25 episodes. This one of course, is female hormones. But there's also honeymooning weight loss postpartum, glycemic index and load. Explaining type one diabetes, pregnancy bumping nudge one bump and nudge to long term health emergency room protocols glucagon and low Beegees. Illness injury and surgery fat and protein exercise setting your Basal insulin variables the perfect Bolus, mastering a CGM insulin pumping Temp Basal Pre-Bolus, all about insulin, all about MDI newly diagnosed starting over actually listed them in reverse there for you. But you can find them right now at diabetes pro tip.com. There are 1,000,000% free, they're not paywalled. You can get to them and start them and stop them or listen to them as you would like. I'm going to tell you that I think if you listen through those pro tips, they're a pathway to an A one C stably in the low sixes or even fives. Everything I know about type one diabetes management to be important is in those episodes. And along the way, I always have Jenny Smith, there with me having those conversations, I'm going to tell you at the end of the episode all about Jenny, but for now just know, she's had type one diabetes for a very long time. She's a CDE. And a lot more. So head on over to Juicebox Podcast comm or diabetes pro tip.com. Or you can just go back in your podcast player to Episode 210 and start right there. I really hope you do. There's a ton of information in these episodes. I think they're very easy to listen to and even easier to understand. I hope you take advantage of them. All right. Okay, give me a testing. Hello. Alright, you're there. I'm there. Okay. Yeah. All right. So I've spent, not my whole life, you know, but the last number of days and weeks looking into all of this, trying to get ready to make a pro tip episode about female hormones. And it's a very scary proposition. There's a lot going on. I'm not scared, scared, but I'm overwhelmed. And then the last kind of piece of it was that I went on to the Facebook page and you know, said to people look, you know, throw out your questions for this episode. I want to be clear, I almost didn't think I needed their questions so that we could talk. I wanted to see if there was repetitive need, like, what are people like same questions over and over. And my goodness, I mean, it's kind of obvious, right, like so. The questions ranged from like, just God, is there any rhyme or reason to this to what about menopause? What about Hurry menopause. What about the time where my kid isn't getting their period yet, but it's starting to exhibit, you know, symptoms and having hormone fluctuations, talking about puberty and then pregnancy and then and then

is your head spinning post pregnancy? It's it's listen nature. God, I don't care what you think this is there's got to be a better way to do this. Someone, someone, this was an afterthought, like like someone at the end was like, oh, you know, here's what we'll do, we'll throw some eggs in here and then you'll have to throw in some estrogen to get the eggs really roll and then one egg will come out. And if they don't get pregnant, the whole thing will just bleed out of their vagina. Perfect. Like, I don't know who what. Oh, my goodness, PCOS keeps coming up. Is that polycystic ovarian syndrome? PCOS? Yes. Now I know those words. So already, Jenny, I want you to tell me what you just said before we started recording about the inequities of diabetes management from men to men to women,

Jennifer Smith, CDE 6:11
or from an education standpoint to begin with. I mean, it was not something that was ever discussed in my presence, at least and I don't think my mom had outside of visit conversations with my peds and know at all about hormones. Right. So I learned all of this as I was having this like, typical cycle, you know, that should happen after a certain point in the sort of teen years. And education today. It focuses on diabetes, in general, right? Not on if you're a woman with diabetes, versus if you're a man with diabetes, these are the differences that you will definitely see. So you're a woman with diabetes, you've got all the female hormones pumping in your body. Let's discuss diabetes from the angle of being a woman. Right? I mean, especially for my like, I would even say, when I start working with somebody, if they're from about the age 1011, all the way into wellness, even the women they work with into the perimenopause and menopause age, that's something in an initial visit, I always ask about, because if even if it isn't yet visible, it will be at some point. And people need an idea that they need to like, see out into, if I see this and this and this, I'm clearly not a crazy person. This is body function.

Scott Benner 7:44
Well, I guess especially given that, you know, because we talk about things in general terms, like the cycles, 28 days, that's in general, it's not, it's not for everybody, and it might not be for you from month to month as well. So if you can imagine when you hear people talk about like diabetes, like just when I thought I had it, it changed or you know, those memes, there's meat is it memes? Oh, my God, I'm old, you know, where it's like Monday, two plus two is for Tuesday, two plus two is seven, you know, Wednesday, two plus two was zebra like that kind of stuff. If that's already how diabetes feels to people in general, and then you put this on top. I mean, you really are kind of creating two different spinning layers of confusion that can impact each other, or show up on their own. And I don't know how you're supposed to make sense that I actually after going through all this, I have an idea I'll share at the end about how to get a handle on this. But I just don't know. Well, I guess to give people some context, Arden 17. So this is the depth of my understanding of this. My understanding of this is I'm married, I've lived with a lady for a couple of decades, and, and my daughter has diabetes, and she's been getting her period for a while.

Jennifer Smith, CDE 9:06
And I bet you never paid as much attention as when it really was in reference to diabetes management.

Scott Benner 9:12
Only thing I used to pay attention to was there's this what I call the nice day, there's like this. There's this. There's this literally one day a month, where my wife is a 1950s. Like, I'm making quotes perfect mom wife, Glover. Like it's that day on that day. I feel taller, more handsome. Like, you know, like she is so incredibly

Jennifer Smith, CDE 9:41
kind of like Leave It to Beaver mom, sort of at that age have an idea of what a Mom was right? Yeah.

Scott Benner 9:46
100% and I and I, I bask in that day because the day that comes after it. I can't even look her in the eye. Because if I do something wrong, she's the different like and then I Know that the the event is coming in about five to seven days. Like that's how it works for us paid enough

Unknown Speaker 10:07
attention to actually like I can tell you many, many spouses or partners.

Scott Benner 10:13
I thought I was gonna die. I was defending my own life, you know. And so for years, that's the only way I've ever thought about it. And then Arden starts to get her, you know, and then we're kind of rocking along taking care of Arden's blood sugar. Like, it ain't nothing some days, you know, it's just like, I do really have this all figured out. And then one day, she started getting her period. And it was all fine at first. It actually almost it got more difficult at some junctures. But it was, it was very structured. So I didn't have any trouble with it really. Right. And then all the sudden her periods got heavy. And you know, people listening will know that, you know, Arden went through a year or two of like us not understanding what was going on. She got anemic a number of times, she had to have iron infusions. This was all ended up being because of her period. Right? Yeah. So Arden would get her period for like, 11 days, like she'd have like a 11 day long cycle, and then only a couple of day break before she started to bleed again. It was just ridiculous. Which led us to put her on birth control, hoping, like, you know that she wouldn't bleed to death. Because she was, I mean, the impact on our life was insane. Sure, you know, and so first go round with the birth control they gave her it wasn't strong enough, didn't really do anything. But they still ask you to be on it for 90 days before they consider changing it. So you, you struggled all this time you think you have an answer, and then 90 more days struggling. And then they moved her up to another, I guess strength and that has, you know, straightened out her. Excuse me also, the first indication of that problem was nosebleeds. Oh, really bad out of nowhere. nosebleeds, right? That only happened once a month. And it took us a while to figure it out. It was literally happening on a cycle. I never was able to connect it to her periods. But the minute she went on the birth control and the second round of birth control, and it straightened out her periods. The nosebleeds never happened again.

Jennifer Smith, CDE 12:34
That's really interesting. Well, and I mean, again, a symptom that if you're paying enough attention to your body, there are lots of things that your body is trying to tell you. Yeah, right, if we just pay attention to.

Scott Benner 12:47
And it's why I bring it up, honestly, because part of what I figured out, Jenny, part of what I figured out being a man who doesn't get a period, and a person who doesn't have diabetes, as I considered talking about this with you today was was that you kind of have to, you got to kind of have to Jane Goodall it a little bit, right, like you got to take notes and step back and see things and keep wondering what's happening until you can build some some idea of like, I keep seeing this thing over and over again. And where does that fit on the calendar? And how does it work in relationship to, you know, bleeding or pain or insulin resistance, and then sort of start making sense of it, you have to track your period, maybe for six months before you'll be able to wrap your head around it a little bit,

Jennifer Smith, CDE 13:37
especially if your cycle is not regular. I would say for women who especially women who are considering maybe you're starting to track things and pay attention because you are planning a pregnancy, or maybe you're really trying to prevent a pregnancy. So then tracking things becomes just as important, right. But then along with the lines of even planning a pregnancy, the goal in diabetes is to have pretty optimized management prior to conception. So yes, I mean, you really should be tracking things for a fair amount of time, if you don't have them already nailed down because you've paid attention, right. And there are a number of really good period apps out there. I mean, there's some that are free that do just as well as some of the ones that have all the 1000s of bells and whistles for tracking everything else. But I think the ones that are the best actually have a place where you can keep notes. Because the tracking app that I like to use, I actually track month to month, how my insulin changes have looked this month. So I can go back last month, the month before and actually see, has it been consistent enough? Is it going along with what is normal for me? And that helps.

Scott Benner 14:52
Well, even very recently, in the last couple of months, Apple added a period tracker to their health app, which So interesting, robust, and it's free, and a lot of people use Apple phone. So I wanted to throw that out there.

Jennifer Smith, CDE 15:06
I didn't even know that was an option. So thanks. Yeah. So

Scott Benner 15:09
because Arden uses one that's third party, I don't even know what it's called now. But as I looked at people's questions, and I thought about Hold on a second. The gods are coming after me for talking about periods when I'm not a lady. That's right. As I thought about how I figured, like, like, step back and look at what we had to go through to try to figure this out for Arden. And then I looked at people's questions. The real fear, when you see fear is around the unknown portion of it. And all I could think over and over again, when I saw their questions like, How do I know if it's gonna fluctuate? When do I turn up my Basal insulin, if I can't be sure when it's gonna start? I kept thinking, you're gonna have to track it, you're going to have to pay attention, you're going to have to put like, work in. And I know, that sucks, because it feels like diabetes has already worked. But it really made me think about like, kind of what we talked about another pro tips, which is, you know, some upfront effort can save a lot of heartache, right, over and over again,

Jennifer Smith, CDE 16:13
or a lot more micromanagement than you really should need to be doing?

Scott Benner 16:17
Yeah, yeah, you get stuck in that situation where you're constantly constantly constantly adjusting your blood sugar. In the moment, which I'm, listen, I'm a fan of if you're lost, to stay flexible. But in this situation, where what was the number I saw the average woman's going to have how many periods like 400, and something or I was like, oh, like,

Jennifer Smith, CDE 16:40
hold on a lifetime? Well, I guess if you expect an average age of a period starting at the age of 12. And there are 12 months in a year, right? So you would have, let's say one cycle a year. And then the average time period of a cycle, completing would be about, let's say, age 12, all the way to maybe 55, let's say maybe even 60. And that's a good amount of time that you would be having cycle.

Scott Benner 17:15
I'm using your math 55 minus 12, is 43 times 12 months, is 516. There you go. So I'm saying

Unknown Speaker 17:24
that's a lot of tracking.

Scott Benner 17:28
I'm saying put in put some like real, like, it's gonna be honest effort, because you're gonna have to track you know, your insulin use every day. And, you know, just giving yourself I think, what helped me was just simple words. Difficult, easy. You know what I mean? Like, referring to my management, you know, meals were, what I expected, easier than I expected, harder than I expected. Yes. You know, my Basal seemed to work. Well, not Well, today, like just kind of keep it keep it like that. You make a little note for yourself. And I'll tell you to tracking your period is going to help you get better at taking care of your blood sugar, too, because you're gonna see all kinds all around. Yeah, yes, yeah, all kinds of things that you didn't, didn't see before. To begin with. You're

Jennifer Smith, CDE 18:13
gonna learn a lot of things too, in that time tracking for all of those other variables that we have to adjust around, right? Because I for one, know that my sensitivity, once I've gotten to about day three of my period, after that point, and until about ovulation is a really sensitive time. But it's more sensitive from day three to about like day seven ish. And in exercise, I have to be more aggressive and adjusting my insulin for exercise. Or I will go low. Despite my other tools and tweaks working outside of that. I will go low if I don't adjust more than I normally would, is that

Scott Benner 19:02
a progesterone period in there.

Jennifer Smith, CDE 19:05
So you're essentially when you're looking at progesterone that is typically like peaking at certain points, right? And then there's also the luteinizing hormone, there's follicle stimulating hormone and there's estrogen and a lot of hormones that are coming into play. So progesterone kind of starts to really kind of like, fall off essentially, once your period is started. It has really climbed in the time of you coming into potentially having a period and part of the reason for that is in the anticipation that you in sort of that Avi LaTorre time period, have actually conceived right. progesterone levels will stay high and continue to climb in pregnant See, when you don't have conception happen, and you start to have your period, that level falls, because there's no reason to have that elevated. I mean, again, other hormones at play here as well progesterone being one of them, but it doesn't need to remain where it was because you're not pregnant. Okay. And so then it fluxes

Scott Benner 20:21
right. And do do we let's try to think about this. Do we count the the beginning of the cycle is considered when the period starts, right?

Jennifer Smith, CDE 20:32
Day one of your period is day one of your cycle.

Scott Benner 20:36
Okay. In that moment, estrogen at that point is lower. Is that right? And then it starts to,

Jennifer Smith, CDE 20:45
and then estrogen starts decline coming into ovulation. And then in that next phase around ovulation and potential like conception, again, progesterone is sort of like climbing into that time period. Right? So, you know, again, all these fun hormones doing different things. I mean, if you even looked up a simple like just Google, a graph of like, what your hormones should look like, you can tell why. One Basal for 30 days in a row, if you're a woman who has a monthly cycle, doesn't work. Yeah.

Unknown Speaker 21:27
It doesn't,

Scott Benner 21:28
you know, what else I learned by digging into all this is that not that I wouldn't expect this because it's a physiological thing. But it's incredibly complicated what's happening. It's not just like, you know, your your eighth grade health understanding of it, which, you know, in my mind was, an egg gets released, you use it or you don't use it, if you don't use it, you know, the uterine lining and the egg come out in a period, which I know is high level what it is. But the idea of like the ramp up, right, like the gosh, like you start talking about like follicles, and like, there's this process that's happening in there, where your body's trying to locate the strongest egg to be released. It's not just like the next one on the assembly line. It's like it literally anyway, it's mind boggling. Even the TED talks on it are confusing. Even when even when nice girls sit in front of cameras in front of YouTube and try to talk to you right in your eyes, you're like, I don't understand, there's so much happening. But I think for the case of but for type one for using insulin, is it is it as easy as saying that there's a time when you're bleeding, there's a time when you're ovulating. And there's a time when your body is trying to make your body a hospitable place for sperm to live. So that the process of fertilization can happen well, is that basically like there's I mean,

Jennifer Smith, CDE 22:52
that's basically the simplified and I think, sort of along the same line of what you're getting at is, if you, if you're having a cycle, whether you're on birth control with a cycle or you're not on birth control with a cycle, you can expect the times of your period to show similarities for you in insulin need, right? One person may experience during this phase of, you know, hormone release, or this phase of their cycle, that they always have higher blood sugar's now that they've been tracking things, they can say yes, I'm always getting higher here. One of the first places that that commonly starts is the fasting blood sugar, or the overnight blood sugar. For whatever reason, in the hormone dance of the human body, that's the first place that commonly women see things are running higher. And if you start to pay attention to your calendar, it will most likely coincide with that's going to be somewhere about like, three to maybe seven days prior to your period, starting. Some women experience really short lived higher insulin needs. And whether they may have missed a slight nudge up maybe a week sooner. Most of them notice, gosh, the first you know, day and maybe the two days before my period, I'm just high I can't take enough insulin, I dump it all in and I still sit high. Well, next month, you know, if that's the case, and you start seeing higher blood sugars, and you do and you are maybe somebody who doesn't have a regular enough cycle would probably expect that this is what's probably on its way as long as your site isn't bad and you know, all the other variables that it could possibly be

Scott Benner 24:42
Yeah, so it's going to be incredibly important for you not to throw your hands up to the diabetes ferry and go it's just did diabetes. It's happening to me again, like after it happens a couple of times. You gotta say like Jenny saying, like, this is what happens. Whether or not I can tell you that it absolutely happens on day. I don't know 30 Have my cycle or not? It becomes unimportant like you, you sort of see, you know, it's not any different than like, as you're talking about all this and about when people see higher blood sugars, like Arden has this too, but because my mindset is, like more insulin push back, don't let it happen. I can't see it. Sometimes I can tell you that we're bolusing more or that I'm running a higher Basal like profile. But I'm so accustomed to just being in the fight and fighting the fight. I sometimes don't think about why it's happening. I just, I just adjust

Jennifer Smith, CDE 25:35
to get it back to target. Yeah. And I and I think that's, that's okay, as long as you're okay, adjusting that way. And if that works for you, then great. I think that more women especially again, those who are planning a potential pregnancy, are really wanting to track well enough because they're also in ensuring that their blood sugar's are really optimally managed for possible conception and that thereafter, you know, so if you really do want more consistency, rather than saying, Well, I know how to do more insulin, I do it all the time. I just, you know, adjusted here and take more, they're adjusted back here or whatever. But if you have even those that have irregular enough cycle, it could take some of the like headache out of the arm Hi again. I know I need more, I'll take more. But gosh, is this happening regularly enough that I could actually figure out how much more do I need on an average monthly change time? That is less guesswork in the moment that

Scott Benner 26:38
and the reason I brought it up is because the process of getting ready to make this episode with you made me realize I'm gonna set up three different profiles for Arden because she's gonna go to college. Yeah, know what to do her blood sugar's gonna go up and she's gonna be like, this never used to happen before. You know, and and she's, you know, not gonna realize the thing she's missing is me. Texting, texting or going yo Bolus, what are you doing? Cuz because for people who don't like really understand, I know it sounds like micromanaging to some like newer people but for people listening the podcast I don't imagine it does. Like, I don't like to see a blood sugar over 140. And I act like like, you know how some people might act when your blood sugar's 300 is about how I start feeling at 140. I'm like, yo, what are we doing here? Because in my mind, I'm targeting back to 80 in my mind, 140 60 points too high. Like, get it get it, but the the amount of insulin that it takes to get it has climbed since Arden's been on a birth control pill. So while yes, the birth control pill has regulated Arden's period, and she's not bleeding to death anymore, her diabetes has gotten more difficult. Yeah. Because and now if you go look at graphs about how insulin like listen, what I know about birth control is probably not enough. But you're getting you're getting a pretty regulated amount of these hormones every day. And and that birth control is literally tricking your body into not releasing an egg. I didn't realize that. That the bleeding

Jennifer Smith, CDE 28:16
keeping you on a one cycle of hormone akin to not needing ovulation.

Scott Benner 28:22
Yeah, right. And so you're not nothing's happening and ovulate. Like the whole process isn't happening. Actually. I think what confuses people? Is that the bleeding that happens when you're off the hormones and you're on the the placebo? CBOs is not your period. It's got it's actually got a name. It's, uh, hold on a second. I have so many browser windows open. It's called withdrawal bleeding. Yeah, yeah. It's not your it's not the same thing

Jennifer Smith, CDE 28:51
I never heard. I've never heard it called that before. Okay. Well,

Scott Benner 28:55
I was schooled, I recorded an episode about this with a different podcast. I'm gonna be on a vagina podcast pretty soon. And that's funny. Oh, it was hilarious. And as I was being asked, I was like, why is this happening to me, but um, but people who really take birth control? I don't mean seriously is the wrong word. But but see it as stuff that maybe, you know, there are people who think you shouldn't do it. There are people who think you shouldn't tell people how to live their lives. There's a lot of consternation around birth control in some circles. And it's important for those people for you to know you're not actually getting your period when you're on birth control. So and I have to be honest, I don't want Arden to be on birth control not because it's birth control, but because I don't want her to take anything she doesn't have to take right but she's she was going down. You don't I mean, like Yeah, we were looking at a real like, I guess this is it. Like you know the money with the money we save for college. We could buy a house with now or something Well, and

Jennifer Smith, CDE 29:56
that's I mean, those there are I think really there really good reasons to utilize birth control all around, there are. But in a case like this, it's almost a necessity in order to get containment of something. Now, the other thing is, you know, is this something that's just, it's just the way that her body is going to continue to work even into like adulthood, where she continued to have to have this level of birth control, you know, management, so that she doesn't have this problem. That question, you know, I

Scott Benner 30:29
had constantly like, when do we just like, stop at once and see what happens? You know what I mean? Like, right, but I don't understand any cause and effect reasons why using birth control for a while, would you know, quote, unquote, regulate things? And then you would need it anymore? Were? Or was this just a cycle of her life, and it was going to pass on its own. And we're never going to know, as long as she's on the birth control pill, right. I keep praying, I keep thinking maybe, you know, a few months before college, maybe we like, would try Bella bail on at one time and see what happens, because you've

Jennifer Smith, CDE 31:06
done enough work already to know. I mean, she's used several different types of it. So you also have an idea of what works, what really did nothing good. And what does actually work because there are so many kinds of birth control that are available, and so many mixes of hormones that you could use, or some are single, single hormone and some are a mix of hormones at different levels. They're taken different ways. I mean, there are

Scott Benner 31:39
one point are our pharmacy benefits changed or over to a generic things were going great. And then they change the generic a went right back to where it was again. Oh, and then we had to swap her back to another one.

Jennifer Smith, CDE 31:53
So funny, right? I mean, if it was the same thing, only a generic what's different, right?

Scott Benner 32:00
I have no idea. This is the this. Jenny in one way or another vaginas are the bane of my existence. Just there. They're torturing me from different angles and different perspectives all the time. And, and on Arden's period has been, I mean, a roller coaster, it has not been fun for her for the, you know, people trying to help her.

Jennifer Smith, CDE 32:24
Well, and I think you see it from a perspective of, you want the best for her, you want her to be healthy and enjoy life and everything. So you see it really as a it's problematic, not from a physiologic standpoint is problematic and what it brings into the picture of her management, you know, you may have a very different look on it. If she didn't have diabetes.

Scott Benner 32:50
Yeah. Yeah, I guess I there's so much about I wouldn't even understand or pay attention to her. Right, sir. So I, I'm basically having this conversation to tell people that I'm going to start doing what I think you should do, like I'm gonna, I'm gonna set up my own tracking app. And I'm gonna track Arden's like insulin inputs, just Jenny's making a face because I don't do

Unknown Speaker 33:13
I'm pretty yummy. Yes. Like, you don't do things like that, because I don't

Scott Benner 33:17
She's gonna leave for college and either bleed to death, or have a one see in the aids like one of the other. Like, it's just one of the others gonna happen. So And typically, I

Jennifer Smith, CDE 33:27
mean, that is, it's also another piece in the mix, too, because you brought a lot of things in that could be happening in periods that are mismanaged, right? Someone who has excessive bleeding can bring in a lot of other health risk problems that can also make the diabetes management piece even harder to figure out and manage around. So it's really important. I mean, on average, you know, quote me, but I think I read at one point, like the average woman with a normal healthy cycle length, and not excessive bleeding, really only loses about a quarter cup of blood through the whole period, which is it's a tiny amount, right? I mean, if you know what a quarter cup measuring cup looks like. So I mean, if you're saying gosh, excessive, clearly excessive is like, lots and lots that shouldn't be happening.

Scott Benner 34:22
Here's the one measuring stick for you. Arden's ferritin gets down to like the teens. She gets an infusion. They tested again, it pushes it into like the 130s. It gets pretty high when you get the infusion. Yeah, within three months of not being on the period. She was back in the teens again, teens again, yeah. So and just I mean, for people who don't know an email, low blood, low iron, whatever, you know, however you get to it. I mean, just can't hardly pick your head up. Oh, freezing feels horrible. You feel like you're dying, the whole time, shortness of breath. You can have heart palpitations. Like it's not good, you know, you get pain in your, like muscles and joints and like it's it's terrible. So Arden's gonna stay on this as long as she needs to but, but it's funny while she was home, Arden's chill at home, like when she was going to school from home, she needed less insulin. As soon as she went back to in person I knew her needs, were going to go up again. And I did the thing, where I was bolusing too much and didn't adjust settings for a little while to like, it happens to everybody, it's sure doesn't not happen to me, because it's my podcast, like, you know, like, you're so used to managing one way, and then this big piece of your life changes. And you don't even realize it for some reason. And that just made me sadder when I realized that thinking about this, because basically, on your period, your life is changing. Like every couple of weeks, you know, like there's this impact and the end, it might not happen to everybody, there are some women who will listen to this to go, oh, that doesn't happen to me. Or if this is, you know, just like, Oh, my God, well, in

Jennifer Smith, CDE 36:07
fact, I've got, you know, some women that I've worked with, you know, even outside of like preconception planning, just in terms of diabetes management. And obviously, the cycle is a piece that we talk through and talk about, and some women who actually have the higher blood sugar levels during their period. Not before. It's more really an onset while they're actually having their period, which is not the typical of what I've seen. But again, I've heard it enough that it's also not odd or rare.

Scott Benner 36:38
Yeah, no, no, in the questions that I sent to you that that I found online, it was almost like people were like, hey, during these days here, my blood sugar is incredibly easy. And then somebody would come along and say, well, in those same exact days, my blood sugar's incredibly difficult. And yeah, I'm sure if we could, you know, Doctor House, every person in the world you might find, but I don't think that's gonna love that show. I mean, right. sarcoidosis usually. Right? And I don't even know what that means. But, but so did you see anything in these questions that you definitely wanted to go over?

Jennifer Smith, CDE 37:16
I was just gonna go back to because

Scott Benner 37:21
because at some point, too, there were a number of questions about menopause to, and some women are asking about what about when they take hormone replacement? Is it going to happen, then? And I don't know. But it seems like the same as taking birth control to me, right? You're, you're adding hormones to your daily intake.

For the longest time, I believe that one of the sticking points of getting people good information about managing insulin was that it was hard to put it in one place, or to hold people's attention or for them to realize it was there so they could keep coming back. You know, there might be an article here or there or a story that would be helpful to you. But how do you condense it all into one place. And it turns out that this podcast is the perfect way to accomplish that, I would notice that even if somebody understood Temp Basal was really well, they might not have thought about pregnancy, or if they understood, you know, extended boluses, they might not have talked about how to use your Basal well, and that you were going to be lost if you didn't have all of this information in one place. But most importantly, this information needs to be easy to digest and easy to understand and listen to. Right, like you have to want to listen. And I think that we I think we've done that with this podcast. Well, now in my eighth year, with over 600 episodes, there is a ton of information inside of this podcast. It's a it's a compendium, it really is of how to manage your your insulin and live well. So I need you to look for the defining diabetes series. It might seem overly simplistic, but it takes the terms that you're going to be using every day and boils them down into easy to understand explanations. They're not long, they're fun to listen to. And you'll leave with a real understanding of what the terms mean. The podcast also has these diabetes pro tips, which I think are absolutely I think there's they're amazing, honestly, like it's not just because I made them. I see feedback from people every day about them. And I'll actually leave some at the end of the podcast for you. But listen to the diabetes protests, but you need the tools, right? You can't just you can't just look at the instructions to build a bridge not understand what a wrench is. So listen to the defining diabetes and then move on to the pro tips. Now there's also things like how we eat where people come on and talk about all the different ways they V carnivore, gluten free Bernstein FODMAP keto intermittent fasting ton of them, because I think that everyone's eating style should be represented. I don't care how you eat, I care that you know how to use insulin. That's all it matters to me. Once you know how to use insulin, you go ahead and eat any way you want. I just want you to be able to do it doesn't matter what you do. It matters that you can. That's how I feel. There are special episodes, me and Jenny Smith answering questions from the, from the audience, you know, they're called ask Scott and Jenny. In those episodes, we talk oh my god, we talked about so much how to combat the morning rise. How does carb absorption work? How to handle a high blood sugar? What is standard deviation advice for using Basal IQ, just so many different things. There's entire episodes that are just about mental health and type one diabetes, I have afterdark episodes that handle everything from heroin addiction to being a sex worker and having type one diabetes to smoking weed and everything in between stuff that other people don't talk about. But we talk about it here on the Juicebox Podcast. I also have over 10 episodes about pregnancy, an entire series just about the variables that may pop up while you're managing your insulin. You want to learn about algorithm pumping, we've got that covered to the Juicebox Podcast is much more than the diabetes Pro Tip series. I hope you take time to check it out. There's something in there for everybody. And there is a path to the A one C and the stability that you want. So whether you're looking for community or answers, check out the Juicebox Podcast, subscribe now, in an audio app, it's always free.

Jennifer Smith, CDE 41:49
And hormone replacement therapy is usually for the most part centered around like the menopause kind of time perimenopause, menopause kind of time, it's supposed to help to ease much of the hormonal transition that's creating some of the symptoms, things like the hot flashes, and the energy swings and the insomnia and the, I guess, level of irritation one woman may experience versus another. Right? So that's supposed to technically, even things out more. And it's a good question to actually ask, if you haven't, and you're considering are already taking the hormone replacement therapy, you know, asking your physician if they know anything, really about that piece in terms of what they should expect. My expectation would be that with the replacement therapy, if it's going well, then dose is well managed. Technically, you should have actually more stability, then in how you're feeling, which should also bring more stability to your glucose management,

Scott Benner 43:01
right? Well, I guess while we're in this area, what about somebody who's had a hysterectomy? Do they lose all of those, that the cycle is just gone? Right? So that is, but is all the horror or all the hormones gone to?

Jennifer Smith, CDE 43:15
So although I mean, there's a good question, because quite honestly, you could have a partial or you could have a like a total hysterectomy, right? I mean, so there are hormonal imbalances that can definitely happen with partial hysterectomy. It does, for the most part, from what I know causes less dramatic change in hormone levels than a full hysterectomy does. So in terms of that, you know, your hormones definitely shift because obviously there's nothing there to cause that trend of hormones change, right, there's a period right disappears. So, you know, overall, while there may be some initial management that needs to be done, I wouldn't expect that there would be as much I haven't worked with many women who have had hysterectomy. But I wouldn't expect that there to be as much fluctuation as they probably usually had. I mean, when the menopause obviously is kind of similar in that when that happens, obviously your ovaries stop producing enough hormones to continue the menstrual cycle. Right? So if you've had a hysterectomy, which includes removing the ovaries, you would then be essentially moved into sort of like a premature menopause kind of time. Right. So

Scott Benner 44:45
all right. Well, you know what, there's one person that asked such as a detailed question that I think yeah, the way they broke it down might be valuable for us. So her first question was, why does the body become more insulin resistant during different phases of the mess? cycle just laid out for you. And not that I think we haven't. But is the answer just simply there's more hormones at different parts?

Jennifer Smith, CDE 45:09
Right? And so that's, you know, initially when we're talking like what is the surge of the different hormones through the course of pregnancy or through the course of a menstrual cycle, right? So in terms of that rise up in insulin need, you know, there are a couple points of time for different hormones, one of them progesterone, as its kind of rising, in terms of, are you going to find out you're pregnant? Or are you now you don't know that you're pregnant, or you're not going to be pregnant, so you end up having a cycle. So then that climb in progesterone is, again, that typical time period before your cycle starts, that you would have insulin resistance creep into the picture. It may creep slowly, like seven days before you start to notice you've got that rise in blood sugar, okay, maybe you change up your overnight settings, or, you know, whatever it might be, as you get closer to your expected first day of cycle, you're going to see a lot more resistance. I mean, many women find 20 to even 40% more insulin need in that time period of climb in hormone. And then that most women experienced the most significant and resistance the day before their cycle starts

Scott Benner 46:21
the day before the cycle starts, which is the day Yes, leading to

Jennifer Smith, CDE 46:25
day before there, yes, there before their period starts. There's they're bleeding the event here, but in the event, there you go. Um, so you know, that could be, you know, a visual point of saying, Well, I'm not crazy, I didn't need to change my pump site and change to new insulin or nothing was really wrong. I see that this is the pattern and this is what's always happening. So how high did my blood sugars go? How much more insulin did it look like I continually used in the past two or even three months, so that you can expect it now. And you can make a I guess, a wiser shift in your insulin rather than just sort of like completely guessing. Right? Oh, I'm gonna take three units today because clearly two and a half yesterday did work well. Okay. But if you have some back knowledge, you can say okay, this is definitely how much more I needed. And I can adjust better here. Now,

Scott Benner 47:19
do you know there are months that Ardennes period doesn't begin on the first day of the placebo, it happens sooner. Which doesn't make any sense at all. She's definitely kooky and her belly, like like something's, something's going like when that happens. So is yet two days ago. I saw as much resistance from her as I as I had in the month. And I said to her, like something, you're going to get your period. Soon. She goes, I have like four pills left. And I was like, okay, so then yesterday, do all day. Like we had to cut her insulin back. Crazy yesterday. So when she got home from school, I was like, did you get your period? Because No, I still have a couple of days left. But her body acted like her period started yesterday starting and I'm like, I wonder if the bleedings now adjusting back to where it's supposed to be. I also wonder sometimes like Kelly's, you know, still still match traits, my wife still fertile.

Jennifer Smith, CDE 48:19
That's a good thing. The longer you actually have your cycle, the healthier for you. It reduces a lot of the risk of female related cancers. The longer you have your cycle, and the length of the cycle matters to not that this is diabetes specific, but it's a piece in the mix of bad cycle regular cycle and the longer you have it in the life the better for you. Yeah,

Scott Benner 48:43
well, that's good news. But what I was wondering was is you know how you kind of sync up the people? Yeah, like I I've often wondered if Arden and Kelly even being near each other is messing with Arden.

Jennifer Smith, CDE 48:55
Very likely because in college I had three other roommates. And at that point, we we all within a week had our periods at the same time. Yeah, like it was not a house

Scott Benner 49:14
buying a bigger trashcan. Okay, so this person's next question was, do insulin needs change? Only when premenstrual or does it happen around ovulation as well? I think yes. We've pretty much gone over that right.

Jennifer Smith, CDE 49:29
Yeah. And ovulation for some just in clarification, some women notice more significant insulin resistance around ovulation than they do in the pre cycle or like period start time, and it's often much shorter lived have a is a swing up, more noticeable rise. Post meals often tend to be impacted more if you're going to notice a change around ovulation, but it's only going to be like 24% 72 ish hours around that ovulation that you're going to notice such significant resistance. So again, we've got this like roller coaster of hormones going on. Making people feel

Scott Benner 50:14
crazy. Also, I watched a video about how to know when you're ovulating getting ready for this. And there's a lot that you can watch. Oh, geez, I learned a lot about discharge and cervix ripening and feeling sexual, and that it sometimes happens. And sometimes, to some people doesn't happen to others. Some people get many of the symptoms, some people get fewer none. You know, it, I love it when something spelled out to you like this. Here's what could happen, unless it doesn't. Or maybe it won't. But it could and you're like, This is not helpful, like, say something concrete or stop making videos. But it was really, I don't know, it was interesting. Anyway,

Jennifer Smith, CDE 50:59
here's a really good book I got actually years ago, before we even plan to start trying. It's called taking charge of your fertility. And it goes through, it's really, I think, I think that it should be given to women in general. Because even if you never plan to have children, it gives you a really good idea of how the female body works. Yeah. And it can, from just that standpoint, make you feel less like. Like, I've always kind of hated when people are like, Ah, she's getting her period. Like, that's the reason for all of these mood swings and whatever. Well. I mean, that's, quite honestly, it could be true. I mean, it's somebody meaning it in kind of like, not a very nice way. Yeah, but it is true that hormones change and flux a lot. But for you to know that as the person living with it, you don't feel silly about that. That's your body. It's supposed to be doing that.

Scott Benner 52:00
I'm 20% more feminist than I was before I started paying attention to this. And I was already on the lady side. And so I mean, listen, I've never once been given medical direction that began with start with a clean finger. But I've heard those words a lot. Now since I've been paying attention to this. And I just thought like pork girls, like you don't even like cheeses and seeing it happen to my daughter, like firsthand. It really does. I mean, if you're if you're not moved by it. I mean, I don't tease my daughter or my wife about like, Oh, your periods come in, you're acting. But I tell you when I was younger, I probably said it. But now, now that I've lived around it, I'm like, it's not. I mean, they should just say you should you should be thanking them, not telling them. Yes, sir. You know,

Unknown Speaker 52:45
I know, to some degree, and I'm very happy that I have two boys. Like, you're gonna go to your dad. This is Dan's department.

Scott Benner 52:54
You go to your father, whatever he says it's not gonna start with begin with a clean finger. I can tell you, nobody asked Bobby about that. And you you're lucky too, because you're not gonna ever be in this situation that Arden and Kelly are in where your periods are like, No, it just jerking you back and forth. On timing. Right? You know what I mean? Right, right.

Jennifer Smith, CDE 53:12
Because I have like I said, I have experienced that like in college. But I don't think at that point, I was even while I did a really good job of management as well as I could. I that technology at that point was not I mean, there was no CGM. I was still doing, you know, a lot of darn finger sticks a day to see where things were going. But I don't think I was as a two and two even wanting to pay attention to why something I was just like, Oh, I didn't even at that point. I was like, oh, it looks like I just need a little bit more. I

Scott Benner 53:48
mean, maybe we're a decade into having the technology where you can break this stuff down. Versus next question. I really want to thank them for this and I don't have her name here, I apologize. Is you know, she brings up what are ways to track it. Um, you can track it on a paper calendar, you can track it in an app. It's my intention to just like I said earlier, to in a quick, easy way, maybe even colors would work. Honestly, you know, green, yellow red for insulin. I would track insulin needs I would track when the period starting I would try to figure out as much about ovulation as I could. So you can kind of find that window in there about where it is. And I'll tell you to like it sucks but you could track your mood. You could track your you know, your sexual desire, like you can make all those little like clicks there. It's like yeah, you don't I found thinking sucked for women the whole time, is that things that from an outsider's perspective seem like choice can be driven so harshly by hormones, which could make you feel like you're not doing things purposefully like it's your body. Doing it

Jennifer Smith, CDE 55:00
telling you to do you telling you to do

Scott Benner 55:03
Yeah. Like, like, I would hate the idea of, I'm on a date, and I'm open to having sex tonight. Not because I want to have sex or because I like this person, but because my hormones are in a state where it's telling me

Jennifer Smith, CDE 55:17
they're kind of telling you to feel this way. Yeah,

Scott Benner 55:20
do this now. Because sperm will live in you for five days, and then we can get you fertilized and give you a good chance to, you know, bring in this egg along. That's, I mean, it's kind of which brings

Jennifer Smith, CDE 55:33
in a lot of interesting fact, especially for the teenage. Right? Yeah, where I mean, the majority of teenagers, this point are not considering conception. They're not they're beyond that, you know, for many reasons, but those are some of the things that your body is supposed to be telling you to do. And, you know, what's the reason? Well, eons ago, people were getting married when they were 1415 years ago, old and having kids at that point, in fact, you know, if you weren't married by the time you were like, 25 was like, over four

Scott Benner 56:15
are window. Yeah, right. We're five years away from dying, probably it's. Well, I mean, I listen, it's beautiful, like, you know, in a nature kind of naturalistic way. Like, it's amazing. I just found myself feeling badly that you could be having feelings or thoughts that aren't the ones that you decided to have. But then I kind of brought it out larger. And I thought, when my iron was lower, I wasn't who I was. Right? I mean, we're all just, you know, some dialed up level of different chemicals and hormones and impacts and everything. And, and I yeah, I think that I hate to say that I think this episode could have been like, Hey, you should track your period, and then make better decisions about your insulin. Like, I really think that could have been the end of it. And it Well, I

Jennifer Smith, CDE 57:03
think there's other I checked, there were a couple other questions in here that I think that do go. I mean, they they kind of go into, yes, that's the base, track your insulin, see what you need, and then make the decision on how to make your insulin delivery system. Do what you want it to do for you, right, but there were a couple of questions. One of them was on MDI changed my Basal in a certain point of my cycle to deal with increased or decreased physician resistance. And I should I also focus on adjusting my boluses I can say that, absolutely, you'll need to adjust at least your Basal insulin, even on MDI. I mean, when I was MDI, and had caught on to the fact of needing more, based on what my blood sugar was doing, I knew that I needed a certain dose, that was three units, I still remember it was three units higher than my baseline dose for the time period of resistance that I needed. So you know, in terms of that, I could always adjust and unless something shifted and changed, you know, I would have maybe used a little bit more, or a little bit less. But overall, it was, it's funny that I still remember, three units, four was always what I used when I had my period. So yes, you could use more. And if your doctor isn't directing you to do that. Our doctors don't direct us to do many things that we end up doing. This is not advice or recommendation to do that, but discuss it with them. But it definitely and bring in maybe some of the logs that you've kept and say, Hey, I'm noticing this, would you agree? I'm thinking I need this much more insulin, right? I mean, always check with somebody, obviously, if you feel that you need to Bolus is could they need to adjust? Absolutely, they could.

Scott Benner 58:58
Well, you know, I just did the math real quick three units is only like point 125 an hour if you're on a on a Basal program for a pump, so right, but but, but it might have been significant for you. Do you remember what your Basal was back then?

Jennifer Smith, CDE 59:14
Yeah, I do my Basal and overall was sitting at 12. And I needed 15.

Scott Benner 59:22
Okay, yes. Okay. So it's a big jump, even though it doesn't look like a big jump per hour. It is a big jump percentage wise,

Jennifer Smith, CDE 59:29
it was a big jump percentage wise and it was a bit I mean, it looks like a big jump like Gosh, going from 12 all the way up to 15. Oh my gosh, like, that's a lot more insulin right, especially when you talk about like adjusting things. Okay, we're going to add one unit more of your Basal insulin and we'll see how this manages things over the course of that whole 24 hour time period. Right. Um, I the other one that I thought was good to focus on would be using algorithm driven pumping systems as a female, the algorithm was not it wasn't built for this to deal with hormones. It was not it wasn't built for hormones, it wasn't built for pregnancy, you can successfully use it. If you know how to manipulate settings, right? I, I personally find that it's better for me to just adjust my baseline profile in my system. And then on the months that I am more resistant on top of that, then a temporary adjustment up using a temporary Basal or an override or, you know, whatever your adjustment is for the algorithm that you're using. I adjust up using that. Yeah.

Scott Benner 1:00:48
Is this whole conversation really similar to what you would have if you were talking about like, a teenage boy who's going through a lot of growth and hormone changes and stuff like that, like just it's just not on a cycle that you can see as well? Right?

Jennifer Smith, CDE 1:01:05
It's not on a cycle. That's as I mean, it doesn't seem to be from the team guys that I've worked with, it doesn't seem to be as cyclic.

Scott Benner 1:01:13
Yeah, predictable, right? It Right, right. This really is predictable, though, within reason,

Jennifer Smith, CDE 1:01:19
within reason, yes. And I can even say, if you're the person with the irregular cycle, let's say 25 days, one month, 29 days, another month, back to 30 days, and then back down to 25 days. Despite that, the things that you're seeing happen to your blood sugar, in that time period, will continue to happen for you. Yeah. Right. So even if your cycle length isn't about the same, if you start to see those in a time period, that could be soon enough to be close enough to like an early cycle. Or maybe you're gone back beyond that. You haven't seen changes yet. And up now I see changes.

Scott Benner 1:02:03
Okay, right. Yeah. Well, I was just thinking that you're talking about like variables and inside of variables inside of variables. You can, you know, you know, food, food cravings are not uncommon, right around hormone changes. So you could you could have forever thought, why is it sometimes I'm really good at nachos. And other times, I'm not really good at nachos. And maybe it's because once in a while you have nachos when you want them? And sometimes you want nachos? Because your hormones want them. And you're already in a situation that's more difficult. And then you add in food, because what was the question here is like, should I eat differently or exercise differently through different phases of my cycle? Which is a great question. And it may be think, you know, I'm not into telling people how to eat. But there are definitely foods that are easier on you that take less insulin that you might want to try eating, while you're having an increased need for another reason, because now otherwise, you have to increase needs correct difficult food and your hormones at the same time.

Jennifer Smith, CDE 1:03:05
Right? And the hormones are driving a desire for things that otherwise you may have very, you may have very easy management around, right. You may love nachos, but your typical serving of nachos is appropriate and and find. And if it's a hormone driven time, you know, you might eat much more

Scott Benner 1:03:24
of your doctor. You know, while we were adjusting Arden's birth control pills and getting it right, she couldn't stomach meat. Hmm, she was not a vegetarian kind of person. And for a while she couldn't stomach meat, like just getting away from me. She couldn't smell it, she definitely couldn't even think about eating it. And then as her as the pill, we found the right pill. And it got kind of like set in stone. Now that's come back a little bit.

Jennifer Smith, CDE 1:03:51
It must be something to do with the hormone levels in the birth control she's using because it's actually not uncommon for just thinking about hormones in general. Many women have some aversion to meet during pregnancy. Yeah, many women can't stomach red meat specifically. So I wonder if it's something hormonally? Well, similar. That was weird happening for her before it got regulated.

Scott Benner 1:04:18
I'm running around the house pointing to that my wife's like, that's crazy. Arden's like you don't think Arden just thinks I paid too much attention to her. So she's like, stop paying, like caring I brought up to the OB the OB is like, I don't know, I'm like, god dammit, I'm right about this. Like, no one's watching these people more than me. You know what I mean? Like, um, they trust me they don't be dead without me, Jenny. Like, in one way or another? My wife like, you know, like with the thyroid stuff like I'm the one who's kind of like stepped back like you guys hear me talk about on the podcast like being micro and macro. Like on my family on macro. Like I step back, I look for big picture stuff. And I don't worry, but when I start seeing stuff over and over again, I don't know. It's just who I am the guy just don't know, I worry about people. So

Jennifer Smith, CDE 1:05:03
that's not a bad thing necessarily bad

Scott Benner 1:05:05
for me. It's great for them. You've ever noticed me worrying about myself? But

Jennifer Smith, CDE 1:05:12
was this I think this kind of me answers some of the question I see and hear about age. Do How old was Arden when she had her first cycle? Do you remember? Of course you remember?

Scott Benner 1:05:23
No, I don't know if I do. It was a little later than her friends. Okay, maybe,

Jennifer Smith, CDE 1:05:31
as was, as was I? And a couple of questions here, you know, just relative to, like, when should I expect this in my daughter? Honestly, could be as early as age 10. Wow. Honest. And it could be I mean, I was, I was definitely late. I was definitely late and getting my cycle comparative to all of my friends. But I also think, in terms of that, my, my management wasn't then what it could have been if I were diagnosed in today's age, right. So I think that the management style that I had at that point was not managing well enough to allow my body to actually be consistent enough to start my cycle at the time that it technically should have started. Yeah,

Scott Benner 1:06:24
this is Jenny's third attempt to let you all know to go back and listen to all of the pro tip episodes. You can do a really great job of getting your settings right understanding how to make changes for yourself, how to Bolus for meals, how to keep high blood sugars from happening, like she is very artfully telling you, that's the ability and understanding is the is the firm foundation of living with diabetes. She says she's so nice about it when she says I'll just say what Jenny's saying y'all aren't doing a good enough job. You got to get in there and try a little harder. You know, it's funny, I think Artem was 14 Having just turned 15. And I don't remember the date. I remember the situation we we, along with a number of her friends. Were on our way to go swimming. And this was Arden's first time swimming with a period. And a bunch of little girls disappeared upstairs in my house, and came back 20 minutes later, disheveled, sweaty, rocked, and the end, the one girl goes, we couldn't get it in. And apparently, this is apparently at one point like a mechanic

Unknown Speaker 1:07:34
and how funny that they actually like. I mean, well enough with you that they actually announced it to like a guy. Oh, my God, I would have been like mortified, telling my dad something Oh,

Scott Benner 1:07:45
no, no, no, he was described to me as Arden was a car on a lift, and the girls took turns trying to change your oil and couldn't figure out how to do it. So.

Jennifer Smith, CDE 1:07:56
Oh, that's interesting.

Scott Benner 1:07:58
So that's about what happens around here usually. And well. Actually, I gotta say that's not usual. But but it didn't work out. And so I'm thinking it was the end of her 14 right around her 15th birthday. If I'm okay, I'm guessing right? If I'm wrong about that, then it's end. It's not 1516 She's been at this for a while. I think it's 14 to 15. But yeah, like this could you could have kids getting their periods, all kinds of crazy ages. Like what what they used to hear like the hormones and cow's milk or making girls develop sooner or something like I don't know if any of that's true. But you know, there are girls walking around sometimes where you're like, are they 20 or 10? Or like what he can't tell? Yeah,

Jennifer Smith, CDE 1:08:36
I know. Yeah. The I mean, I think that that's like a rabbit hole of we could dive in there. But it would be a long, long discussion.

Scott Benner 1:08:45
We should make euphemisms about holes while we're talking about periods. So. So I mean, do you think, let's see, do you think there's anything else like I mean, I feel like this is a good conversation, I mean, perimenopause, people are asking about different kinds of birth controls, like there are non hormonal birth control, like, ways, right. So, I mean, there's, I'll tell you, more than two people asked about Plan B. Whether as an whether or not that would have an impact on blood sugar's and I wasn't able to find that out.

Jennifer Smith, CDE 1:09:21
You know, I that is a really good one. I can actually ask my, my or my, my MFM. I can actually ask them if they have any reference to that having worked with enough women with type one. I don't know. I mean, the goal of that, obviously, is to not conceive. So it has some level of hormone shift to prevent pregnancy.

Scott Benner 1:09:49
You would think it's an overwhelming of hormones to kind of stop

Jennifer Smith, CDE 1:09:53
whether it has an impact on blood sugar. I don't know that's it's a really good question.

Scott Benner 1:09:59
I don't know enough about how that works. works? How about IUDs? Do they impact blood sugar's that I'm sure you've seen in practice, right?

Jennifer Smith, CDE 1:10:06
Right, those more they seem smoother than other birth control methods from what I have seen. So do they have impact? They probably have an impact in terms of initially having one. And then the outcome of what now your sort of monthly cycle if there is still one remaining, what does that look like? Do you see any shifts? I've, I've seen women who don't actually have any visible cycle whatsoever, right? Who have noticed a minor shift that appears to be cyclic, but most of them tell me that they don't even adjust around it. They just end up taking like a little more corrective at the next mealtime the correction seems to work well enough, kind of gets them, you know, back to where they want to be. And they never make any shifts in their insulin at all.

Scott Benner 1:11:03
I have to say that Ardens OB was pushing, pushing, she was pushing, she was saying if we don't find some stability with blood with birth control pills, she wanted Arden to consider an IUD now Arden's like a little young, like we walked out, she's like, the first thing she said to me is like, I'm not doing that. And I was like, gotcha. But it was, you know, she's like, you know, in the future, we might have to keep this in mind. Yeah, I don't I you know, that is another thing I don't know much about. But you look like you have something you want to say. What did you find?

Jennifer Smith, CDE 1:11:32
No, I was actually just looking up a little bit about whether I could find anything on the plan B and blood sugar specific to type one, but I don't really see anything at all that documents that

Scott Benner 1:11:48
Okay, how about so is PCOS somehow related to diabetes? And or no? Like, why is it just because I only apparently at this point in my life, I only talk to people who have diabetes that I I start thinking things are more common or

Jennifer Smith, CDE 1:12:03
right PCOS is more common in those with other metabolic shifts that include insulin resistance and PCOS can bring more resistance into the picture, right? Other metabolic things being have more difficulty with weight management, they have higher cholesterol levels may already have higher blood pressure, despite potentially doing all of the healthy lifestyle things to manage those. But PCOS is more common with the type two. But interesting. In the past, I would say five years, I have had more women more normal, like healthy body weight and healthy lifestyle who have actually been diagnosed with PCOS. And part of the part of the reasoning in terms of like sending them to their back to their doctor to say, hey, I don't understand I am doing everything in the picture of management. And I need so much insulin to keep things where they are. Something else has to be in the picture. So a mine is always Why don't we look for PCOS, because if that is in the picture, one of the long term even in women without diabetes with PCOS is a medication that's very common and uses Metformin. Okay, it helps to dial down the resistance and from the PCOS level, it helps with some of that cystic nature in the ovaries and it helps with evening some of that out in terms of hormones and everything. So Metformin is definitely a heavily used additional medication that could be you know, beneficial.

Scott Benner 1:14:02
Yeah, somebody mentioned Metformin in in one of those I forget where it was. I didn't bring that question over for some reason, because they were like, because they were talking about like, can I could I just use Metformin during certain times of resistance around my you can't stop and start it right?

Jennifer Smith, CDE 1:14:22
That's no that's not the way that Metformin is meant you know, if you're going to use it, we started a low dose, evaluate tolerance I mean, it's one of the older oral medications it typically for most people is well tolerated after you get over some initial like first week or so of like some stomach upset and as long as you're tolerating it, it increases to like more of a therapeutic level. And then you continue use of it you

Scott Benner 1:14:48
don't stop at use Advil during one section of your Yeah, I only got I brought it up here because if somebody was thinking maybe somebody else was thinking, I did not think that was a good idea. So okay, I don't know, like, there's this moment where I go, Are we good Johnny that I do we do it or?

Jennifer Smith, CDE 1:15:08
Yeah, I think, you know, I was looking at more of the questions just to make sure that P A mean in terms of talking specific like cycle, I think yes. Um, I mean, I think discussion around things like menopause and that kind of stuff are it's such a transitory time in terms of

Scott Benner 1:15:37
that ever, right? Like menopause can go on for years.

Jennifer Smith, CDE 1:15:41
It can go on from very long time. Absolutely. I mean, and that's really perimenopause. Right. Once you're fully in menopause, you have no longer had a cycle for a year's time. Right, then are you are menopausal. perimenopause starts with many women notice a shift in their cycle. Let's say you have had a regular 30 day cycle consistently, you kind of getting into the age of and what age in general about 50 ish, but women with diabetes have from research sort of proven to start earlier than the typical like age of 50, let's say. So any shifts in your cycle, without any lifestyle changes or anything like that, you know, now you're having 25 day, the next month, it's 30. Day, this month, you have three days and a really light cycle next month. It's really, really heavy and painful. And it's just not your typical, it could be very likely that perimenopause is kind of in the picture and there aren't any many women would say, Well, can I you know, get hormone testing levels done to see in this point of perimenopause, it's not typically recommended. It really isn't until menopause, that they would recommend doing testing of hormones to actually sort of prove the case that they have come to a level without a cycle, you're no longer ovulating. And some women actually haven't done the testing to make sure that they're actually not ovulating. From just like a sexual standpoint, they're just ensuring that they can't get pregnant any longer.

Scott Benner 1:17:19
Yeah. Oh, god help you imagine having a baby when you're 50. I'd be so tired.

Jennifer Smith, CDE 1:17:24
I personally i can't i

Scott Benner 1:17:27
i would be so tired. That's all I can think of.

Jennifer Smith, CDE 1:17:31
Yes, I mean, from an age No, I can't.

Scott Benner 1:17:35
So no, my God. Last night, Kelly was like, can you imagine if we had had three kids? And one of them was just a couple years younger than Arden. Wouldn't that be nice? And I was like, No, I don't think so. It's it's 930 and I want to go to bed. How would that be a good thing? That child would end up being feral? I'd be like, just try not to die. And I don't know if I'd have the energy to take care of it. I really don't. I don't know. I mean, good for you. If you do. I don't think I could. That it. We're

Jennifer Smith, CDE 1:18:01
good. I think that's it. We should be good.

Scott Benner 1:18:04
Alright, so thanks. On the whole that's everything. I'm

Jennifer Smith, CDE 1:18:09
probably not everything but you know, it's

Scott Benner 1:18:12
alright, cool. Awesome, Jenny. I really appreciate this. Thank you so much. Thank you. Yeah, you're very welcome. My friend Jenny Smith has had type one diabetes for over 33 years. Jenny holds a bachelor's degree in Human Nutrition and biology from the University of Wisconsin. She is a registered and licensed dietitian and certified diabetes educator and certified trainer on most makes and models of insulin pumps and continuous glucose monitoring systems. She is also all over this podcast so if you like her check out the finding diabetes es has gotten Jenny the rest of the Pro Tips and so much more. Jenny does this for a living by the way you can hire her at Integrated diabetes calm Okay, I promise you euphemisms for periods so let's do it

Okay, some of these are going to be in delicate so stop listening now if you don't want to hear them. Alright, what do we got here? Strawberry week. Red and Red Army. Red wave. Red Ant is visiting men's which is short for menstruation. Riding the red wave code red. The red plague Aunt Rose is visiting red Castle entering the Red Sea tomato juice ketchup week. Ketchup week. That's not good. I don't I don't like that one. That makes me upset. What else we got here? Oh my god, that one's horrible. This is from in French. Fare do boo dime. I mean I don't think Big French but cooking black pudding. The hell's wrong with you people? The small little elves Niagara Falls. I have my things. The marquee red see? I feel sick red light red balloon. I have a flood lady days that time of the month, painters in the stairway what else we have here? special situation. These are Chinese special situation. Apple bread. Bloody Mary. That thing that comes in Japanese a Girl's Day. Blood festival once a month. Arrival of Matthew Perry. I do not understand that one at all. The Spanish say indisposed girl stuff. The frosting the steak. The frosting the steak. That's terrible. Little Red Riding Hood. Your devils the red cousin the vampire. I'm not even gonna say that one. What do you think of that? There's one I won't say that one's that one's terrible red tide. I prefer lady time. That's my favorite one. I'm also a fan of my baby box is trying to kill me. Here is another list. I painting the garage door. Moon time cranberry woman the Curse Girl flu. Girl flu is funny. Checking into the red roof in lady business Bloody Mary. Oh, i Ooh. I'll say it. Ready? Hold on. 123 the blob on the rag. I find that to be vile Crimson Tide. It's nice. I like that movie. Alright, I mean, listen, there's more than one of these obviously, you probably have a favorite. I just told you my favorites are girl time. My baby box is trying to kill me. And I did find girl flu very, very entertaining for some reason. Okay, if you're still listening, I really appreciate it. Thanks so much. I'll be back soon with another episode of The Juicebox Podcast. Make sure you check out those pro tips from the beginning. Listen through it'll be well worth your time.


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#611 Diagnosed at 73

Scott Benner

Nancy was diagnosed with type 1 diabetes at age 73.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 611 of the Juicebox Podcast.

Today on your favorite podcast, I will be speaking with Nancy, who was diagnosed with type one diabetes at the age of 73. Nancy is now 75. And she's coming on the show to tell us her story. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your healthcare plan, or becoming bold with insulin. Are you looking for a simple and easy way to help people with type one diabetes? Well, if you are, you're in luck. By going to the T one D exchange and filling out their survey, you'll be helping people with type one. Now you have to be a US resident who is either a type one or the caregiver of a type one. But after that, go to T one D exchange.org. Forward slash juicebox fill out the survey does not take long at all. It's easy to do from your sofa, you know your cell phone, your tablet, very, very easy. And every time that someone completes the survey, not only does it help people with type one diabetes, but it helps the Juicebox Podcast T one D exchange.org forward slash juicebox

this episode of The Juicebox Podcast is sponsored by the Contour Next One blood glucose meter. Use the blood glucose meter that my daughter does. Contour Next One, find out more at contour next one.com forward slash juicebox

Nancy 1:47
My name is Nancy. And I'm uh I'm I know that the reason I contacted you was because I was diagnosed so late in life. I was 73 when I was diagnosed. So I'm Nancy, I'm a diabetic.

Scott Benner 2:03
This year you aging backwards because I'm fairly I can see Nancy and she can't see me but you're not over 73 Right. Oh, I'm

Nancy 2:10
almost 75 Good for you. But thank you and I you know, and that kind of works in my on my behalf. At this point in my life.

Scott Benner 2:21
You feel you feel younger? Or do you just are you just lucky and you look young?

Nancy 2:30
Interesting question. I think I've I feel fairly young. Just for background, my parents are both still living 101 and 102. So yeah. So, you know, I thought that was kind of that's kind of interesting. And I'm the first one, you know, like in my immediate family with with diabetes. So they're, you know, generally healthy, you know, heart problems, no chronic illnesses. Your brother's doing the same. I mean, there. We all excuse me, we've all had cancer except my sister. Okay, so that was kind of interesting. And there's a reason I brought that up. But that's kind of an interesting fact, which I never even considered, you know, I never even thought about it. But I was diagnosed with melanoma about about five years ago, and it metastasized. And I had immunotherapy treatments, which I never had a day of tiredness or anything. I mean, I felt good the whole time. And even actually thought, or wondered, you know, is this just a farce? What's going on with me, but I've had side effects from the immunotherapy. So that's where I got the diabetes.

Scott Benner 3:53
Oh, okay. Hold on a second. All right, this will be fun. There's plenty to pick through here. So you have a mother and a father who are like 1000 years old and they're still alive and how many brothers and sisters

Nancy 4:02
have a brother and a sister. Okay.

Scott Benner 4:04
So there's three of you. Each of the five of you have had cancer. Except my sister, your sister different kinds of cancer?

Nancy 4:13
Yes, yes. Breast cancer, prostate cancer, testicular cancer and metastatic. Melanoma.

Scott Benner 4:20
Wow. Which one? Did your father have? prostate, and he's doing well.

Nancy 4:27
And he's okay. I mean, you know, it's kind of like, I don't know what to say or not say, but it's kind of like he says, you know, there's a certain point when you wonder why you're still here. And that was probably about four years ago, four or five years ago. He

Scott Benner 4:43
said, how old he is. 102 Wow, no kidding. Yeah, I guess when you're I just turned 50 yesterday. And happy birthday. Thank you very much. And I was laying in bed at the end of my my 50th birthday. I'm feeling a little sad about being 50. And I said to my wife, the strangest thing is, is that here in the dark with my eyes closed, I can't tell how old I am. You know, like, I don't know, I said, I'll get up and look in a mirror. And I won't look the way I remembered. Or, you know, I'll, I'll my son in law asked me to throw with him and my shoulder won't handle it for more than, like, 20 minutes or so. And, you know, that kind of stuff, then, you know, gives you more of a perspective of where you're at. But you'll always think like, oh, I'm 50 I have so much time left. But I wonder what the difference is between time and really usable time, like any way you want to use it time. And that's probably probably how your dad feels a little bit like, Yeah, I'm here. But you know, there's stuff I want to do, and I can't do it anymore. That's crazy. Okay, so

Nancy 5:51
are you. Yeah. Can I Can I please Kevin off that for a second. Because when I when I was diagnosed with melanoma, and you know, I'm sure everybody goes through this. When you have a, you know, death threat, so to speak. I really did soul search, you know, some soul searching and looked at my life. And I had done a lot of things. In fact, at the end of the treatment and everything, I had done a lot of my bucket list, a lot of things that I had wanted to do, and I started thinking, Okay, now what, you know, now what, well, the now what was diabetes, but irregardless of that, it totally changed the way I look at life. And, and in a way, I mean, I'm old, I'm old, you know, in a way, I'm old. I mean, a lot of things that I didn't do as a younger person. I don't know that I could, would or should do them now. So yeah, kind of. I did a lot of reflecting on that and looking at it. And you know, you do at a certain point, you you go, oh, shoot, I can't go back to high school. Or, you know, whatever it might be. Yeah. How?

Scott Benner 7:06
I'm gonna get back to that later. But how old were you when you found out you had cancer?

Nancy 7:12
I think I was 69.

Scott Benner 7:18
Okay. And I think I

Nancy 7:20
was one month away from my 77/70 birthday.

Scott Benner 7:27
Yeah, at 70 years old. You just think I beat it? Like, nothing's gonna happen. Like, what the thing that happens next is, is how I die. Do you start having thoughts like that? I never had

Nancy 7:36
those thoughts. Actually, the crazy thing is, I never even had a thought that I would have cancer. I mean, the same thing with diabetes. I never, it never entered my mind.

Scott Benner 7:47
Yeah. Well, how long did the treatment for the cancer take?

Nancy 7:54
I had a supposedly preventative measure. At the end of the first, well, no. Let's see. At the end of the second year, so I didn't it didn't go anywhere after that, you know, for a while. And then five months later, it metastasized. And so those four treatments really didn't help. You know, apparently, or maybe they did, who knows. But anyway, and then I had, I didn't have a lot of treatments. I was trying to think that I think that through it's funny how I kind of forget things when when they're behind me. But I know I had four treatments of the same immunotherapy that I had before mixed with another one. And then after that, I had the other one. I think once a month for the rest of that year, so I think I think that treatment was about one year

Scott Benner 8:53
or use and how do you think of yourself now in relationship to cancer?

Nancy 9:02
I don't, I never I never saw it as a fight. Okay. I saw it as something that I you know, maybe maybe I didn't know, I don't know if I did something to do to do with it along with, you know, getting that or not, I don't know that. But I, you know, I'm not like the pink ribbon person that runs around and says, you know, I don't know. It's just something that happened. Yes. Just something that happened. I dealt, I dealt with it. And you know, my whole family is kind of that way. I mean, they never really talked about their cancer as much as I talked about my cancer.

Scott Benner 9:46
Well, okay, so are you in remission now? Like, how do they categorize it?

Nancy 9:52
I'm not sure if I am but I think this next appointment or shortly, he's gonna let me Go cuz I, I still see my doctor, the oncologist every three months. Now I only see the dermatologist every six months. Gotcha. You know, I stopped seeing the surgeon a year and a half ago. You know, so I think. Yeah, I think I don't know, you know, he said, if you get it again, the treatment will probably work again. And that's why they wanted to stop it as soon as they did, but yeah,

Scott Benner 10:27
so what about? So when do you get diabetes in this whole mess? Is it? Yeah, right.

Nancy 10:35
Exactly. So it was afterwards. I mean, I've been reading some articles just recently about it. And a lot of people get it right during their treatment. But my treatment was pretty short a year. And then I believe it was because I got it in 2019. At the October so it might have been three years after the melanoma, so maybe a year after the treatments were stopped.

Scott Benner 11:04
And then what was your first indication of diabetes?

Nancy 11:09
Oh, thank you cancer, right. I get was getting CT scans every three months. Okay. And so I went to get a CT scan. And my blood sugar because I always said to have to take your blood sugar, which I didn't even remember it being taken before. But apparently they always take it and she said, Are you diabetic? And I go, No, I don't think so. And she said, Well, your blood sugar is 298. And I just about dropped, because 15 years before actually 14 years before my son had been diagnosed with type one diabetes, at what age? He was 35. And his was not as easy as mine. You know, mine was just kind of like, okay, it's 298 I go home call my doctor. I have a I have Hashimotos Siberian Sienna endocrinologist every six months anyways, I go home color, tell her what's going on she, you know, suggest I go get a glucometer and start testing my blood sugar. And then I start watching videos and went back two days later, and my blood sugar was 202 I think she said I'm sorry, we can't do the test today. And I go, Well, gosh, you know, sunken in the seat? thinking oh, my gosh, do I really have diabetes? And then she said, you know, would you like me to take it again? And I said, Yeah, that's a good idea takes it didn't even entered my mind that she could take it again. Now it might be different. But she took it again. And it was 198. And so they did the test.

Scott Benner 13:06
They just didn't want to take it over. 200 Yes, Jesus, that's ridiculous. Those those meters can be off by as much as like 15% Some of them Oh, give me this real quick. Your son late in life, Baby Lips, baby. Second marriage, baby. We just waited till you had old till you were older to have kids? What was the thing?

Nancy 13:30
Yeah, I mean, we were young, when we had kids, my my daughter was, you know, I'm 21 years older than her and 24. Older, you know, 24 years older than my son. So it was just, you know, at in those years in my life, you just do what the next thing is to do. And now let's have kids. So,

Scott Benner 13:53
so you went to school, and then you found the guy and you're like, Well, it's time to make a baby and find a place to live.

Nancy 14:00
Well, like I went to school, I think the guy found me. And then I quit school so he could finish school. Yeah, boys took me a long, long time to go, you know, get back to school and did you go back? I eventually got a degree in accounting when I was like 38 And then we got divorced. And then I got my master's in social work. When I was 57. Worked. Yeah, worked for 10 years and then just retired, you know, a couple few years ago.

Scott Benner 14:43
That's pretty cool. Okay, so you're so your son has had type one diabetes for a while but as an adult, so what do you really know about it? Before you

Nancy 14:53
know what exactly that that was shocking to me because he was 30 Five at the time. And so he was an adult, and he happened to be living with me at the time. So I'm just going through the experience with him was just horrible. And then, you know, kind of watching him. I mean, he's amazing in a way because he never even gave himself a shot when he was in the hospital, and he was there for 29 days, 27 days, I think 27 days. I mean, in retrospect, I say, How did you get away with that? He said, Well, every time they'd come in and want to teach me I'd let him teach me but I wouldn't ever do it. Okay, whatever.

Scott Benner 15:41
Tell me a second. How many years ago was he diagnosed? 1515 years? Yes. And he got he was in the hospital for a month.

Nancy 15:49
He was in the hospital for a month. I mean, he was dead. Oh, I think he was yeah, he was dead. He was on life support. For about three days. He was on dialysis. He was on. What else? Do you know? He was on a breathing machine ventilator?

Scott Benner 16:06
Yeah. Wow. He really almost died from it, then they Yes. Is that how they caught it? Because he fell over?

Nancy 16:13
No, no, he No. I mean, it was like he went, he went to a doctor fine. I mean, he never he didn't have insurance or anything. So he he had told me for not very long, a little while short, while like a couple of days, you know, he had its downward stomach was bothering him. And it had been bothering him. And he was going to finally go to the doctor. So I go, okay. You know, so he goes to the doctor, I think it was on a Thursday, and calls me. And I'm at work. And he says, Mom, the doctor just gave me some insulin and I'm, I need to go to the hospital. And I'm thinking what, this is weird, you know, what's going on? So I, I said, just, I'll come and get you. And I'll drive you to the hospital. He said, I think I can make it. It's only you know, a couple blocks away. I don't know. Just wait. So I was like, 20 minutes away. I flew out of there, went over and picked him up. And, you know, couldn't find him. I didn't know where he was. But when I eventually found him, we drove to the hospital, which is further than I thought. And as he was walking in the hospital door, and I was parking the car, I saw him and he was just dragging. I mean, you've probably seen that before just dragging their foot one after the other, you know, skinny, I mean, he he was probably 175 and went down to 140 I think, okay, but we didn't notice it. You know, I remember telling him a few days before, gosh, you look so good. You know, cuz he was really thin. He looked really, really good. Yeah, so then he, you know, he went in the hospital, and I parked the car and went in with him. And then they took him back, almost, you know, pretty immediately, and I didn't know what to do. And he was 35. And he, you know, he'd never been in the hospital before. So I kind of stood around for a while and then thought, You know what, I don't, I can't go in with him at this point. And so I went home, and he never called me and I was like, normally he would call me, you know, and I was like, Oh my gosh, oh, well, my parents, you know, my family is no news is good news. So don't worry about it. He's probably fine. And then finally, the next day, he didn't call me yet. And I was like, what? So I finally called around noon. And the nurse answered the phone and she goes, you know, go house, my son and she goes, Oh, he's, you know, he's doing. He's very sick. She goes, he's very sick. But she's in good care. I go, Well, should I come home with her? You know, I mean, he's a 35 year old man, you know, why hadn't he called me? I didn't know. I was totally confused. And she goes, No, you don't know just finish your work and do what you need to do. And then you know, when he'll be fine. I'd be like, okay. But I, when we hung up, I was like, No, this is so I grabbed everything and ran over there to the hospital, and I ran in there. And he was just laying there by him by himself alone. You know, with this nurse that he told me she's so mean. You know, she whatever she does, you know, and she's just, you know, if I don't need some theme, she grabs it away from me and you know, she he said, I'm so glad you're here. I go. Oh my gosh, I'm so glad I

Scott Benner 20:00
Here's, that's insane. Oh my gosh, do you know what his blood sugar was? When they took him in?

Nancy 20:06
He was 500 and something. Wow. 545. And I don't know what his a one C was at that time, you know, we've never really looked at the records. But yeah, and then he was kind of hallucinating at night. You know, it was pretty horrible. And I'm

Scott Benner 20:24
sorry. Now, at what point do you do you start making the light connection? That is? Because you told me in your note that he had a cousin who was type one, since a little kid did that. take a while to put those two things together?

Nancy 20:38
A long while I never thought about it until probably maybe even years later. You know, or if I did, it wasn't prominent in my mind, you know, because I know when when they've gotten together and they they get together very seldom, because he lives. You know, she lives one place. We live somewhere else. So we don't really see him that often. But there's been a couple of times then yeah, they're like, sister, brother. You know, they're hooked into each other and talking, talking, talking. And I thought, Oh, that's good. You know, he has someone else to talk to about diabetes, too.

Scott Benner 21:11
Yeah. Well, now he's got you. So when you're when you're diagnosed at your age, and you're, uh, you know, you seem like you're in shape fit person, like, do they look at you? And what do they tell you when you when they realize your blood sugar's that high? What was the what was the call after they finally ran the test?

Nancy 21:34
When they ran the test and saw the C peptide and everything? She came in to me and she said, you know, and I'm trying to think exactly how it went. But you know, she said, Yep, you're type one. We're not sure if you're, you know, it could be what's in the fixed blank, what li da was and type 1.5? And I you know, of course I don't I still don't know that much about it. But I just figure it's type one. I'm insulin dependent out that way, explain it. And they did the test for the C peptide and the antibodies, you know, about a week later, and I had no antibodies. And she said, You know, I think you're I think this is from the immunotherapy. And so when I went to the doctor, the oncologist I, I asked him, you know, I said, you know, I now have diabetes. And I think it's, I mean, do you think it could possibly be from the immunotherapy? And he said, No, no way, it's genetic predisposition. I go, okay. I go back to my doctor. And she says, No, we're, you know, we think it's the immunotherapy, but don't argue about it. So that was like, what, almost two years ago, and I just recently have found a couple of articles connecting the two. Because I just, you know, that was another reason why I kind of wanted to be on the program was because it's so unique. And yet, I'm sure there's other people out there that are, you know, around my age that have had immunotherapy or are going to, and maybe they're going to fall into this very small percentage, maybe it's point oh, five, I mean, it could be really tiny, of people that could end up with diabetes.

Scott Benner 23:24
Well, so I wonder if, if both of those doctors aren't right. Meaning that I mean, if your son has type one, his cousin has type one. And your note says that once you were diagnosed, your mother started telling you that, that your grandmother had type one diabetes in the 20s. Is that right? Is that right?

Nancy 23:44
Yeah. Or maybe type two, maybe she has her her food. But I don't know how she could have lived that long. She was young. My mom was five years old. So her grandmother was probably at least close to 50. Right. And insulin was only discovered in 1919. The year my mom was born. Right? So I think it had to be type two, which the other crazy thing, since you brought that up was that I was type. Borderline, I've been borderline diabetic for at least 15 years. And I always managed it with exercise and diet. You know, I would go to the doctor and I you know, you're getting closer to 6.5 You know, and I go home and exercise or, you know, cut out the junk food that I was eating and it would always drop down. I mean, it was you know, I'd always go down in that range.

Scott Benner 24:42
That is interesting. So you're trending towards type two. But then you get this immunotherapy and then boom, type one. And your son has type one, his cousin has type one, we're not sure about the grandmother. So I mean Could you have been living your whole life with the markers for type one diabetes, and it took this therapy and cancer to kind of throw your immune system out of whack and kind of your body takes takes a shot of itself instead of the illness? Right? And you get diabetes? Like, that's completely possible. I don't know that you're ever gonna really No, I don't. I mean, listen, I'm not a scientist. But I don't think there's something that exists that we just give people and they magically get diabetes, I think you have the markers for it, and something pushes you over the edge. But it's fascinating that you made it this long without had you not been very sick throughout your entire life.

Nancy 25:42
Ah, you know, the one thing that when I go to these health, you know, especially naturopath or whatever, the one thing I had, which they always bring up is mononucleosis as a, you know, in high school, and I have the Epstein Barr. So I haven't pursued what that actually means. But I think that is more related to the cancer. But I'm also wondering if it might, might be related to auto immune? I don't know,

Scott Benner 26:15
does it? Does it fill your thoughts? Do you? Do you feel like you need to try to figure it out? Or do you not think about it too often?

Nancy 26:23
I don't think about it as much as I used to. But I, I did write to these two research guys this week about you know, are there what are the markers if the if it's genetic, because I don't have the antibodies? Well, at least three of them. I don't have so I'm not sure about the others, but I have Hashimotos you know, I have from the cancer treatments, I have something called vitiligo. So my skin is all different color, different colors. So I'm really concerned about anything to do with my immune system, because it obviously acts in a strange way.

Scott Benner 27:02
Well, I'm testing my memory here. But so first of all, the one I definitely know for certain is Hashimotos is an autoimmune disease. Type one type one's autoimmune. I think vitiligo is two. I'm looking right. Yes, it is. It is right. So you just have. So I guess, Nancy, there's two ways to think about this. How long? How long have you been fighting with the Hashimotos? Has that been lifelong? Or

Nancy 27:29
I at 50, I figured out that I had it or my doctor figured out that I had it when I was 1525 years.

Scott Benner 27:36
Did you struggle prior to that? Were you tired?

Nancy 27:40
Tired? Yeah, just tired? Yeah.

Scott Benner 27:42
Okay. So do you feel less tired now that you take your, I guess Synthroid or whatever you're taking?

Nancy 27:48
Probably, you know, if I skip it, I can sometimes, you know, two days later, I might notice Oh, shoot, I you know, I get that medication forgetting it. Yeah. So, but I've never had, you know, I mean, cuz I listened to your podcast a lot. And I listened, especially to the autoimmune stuff, and the dot, you know, your doctor and all that stuff. And, and I don't have any of the I've never had, or else I don't notice, you know, the typical symptoms of like, a really bad thyroid, right? Even though even though mine is a sponge now, you know, the last time they looked at it with a ultrasound, and he said, Oh, yeah, it's spongy. You know, I don't think it's doing any good for you at all.

Scott Benner 28:36
Probably not doing anything for you. Right, my pancreas isn't helping much either. So exactly what else can go wrong? Yeah, delightful. But but but the reason I bring it up is I guess there's different ways to look at this. Like when you're describing this, there's part of me that thinks you made it pretty far without all this stuff happening. It's kind of nice. I know. That's a weird way to think of it maybe. But you could have gotten diabetes when you were 20. Or you don't I mean, your your thyroid could be really screwing with you or something like that. Like, it's not that I'm saying that your life is less valuable in your 70s. I'm certainly not saying that. But I would. From the outsider's perspective perspective, I would think well Wow, at least it waited this long. Like now to you. It doesn't matter to your life and it sucks, I imagine.

Nancy 29:26
No, no, I agree with you. I taught Yeah, I totally agree with you. The only thing is that as an older person, you know, I'm 75 I mean, a lot of people don't even live to be 75 And I think about the poor people that whose mind isn't as alert as mine used to be before I got overwhelmed with all this stuff. But you know if to learn what there is to know about diabetes to manage it in a good manner. Takes a lot of F, you know, takes a lot of effort. Yeah. And I, you know, that was I really, you know, I was really grateful that it, you know, it seems like my brain is kind of losing it lately but whatever, you know, but yeah, so I agree with you, you know, I think I went this far but you know, have to learn so much. I mean, look at you have over 500 podcasts.

Scott Benner 30:23
I mean, it's a lot. And I listen, there's there can be no doubt, like my mom's 78. And, you know, the things that she can talk about quickly and sharply go away a little by little over the last Yeah, yeah. You know, the last number of years. Politics still, though, she's like rock solid. Her thoughts about politics are like, that's the one thing she's retained, and she can sit and BoomBoom will be sometimes you start talking about things. And she sort of doesn't see the through lines sometimes right away, or you have to explain something once or twice, then she's like, oh, yeah, I see what you're saying. Or she'll forget. And I don't know what she would do if she had a serious illness where she had to control a medication like insulin. And, you know, the other day I had someone ask, someone asked, my wife heard about that knew about the podcast, you know, what do you do? If your visions not so good? What do you do if your dexterity goes away? Like, you know, how do you use these, this technology? If you can't, can't manage it with your hands? And I would imagine all that stuff is right in the front of your mind. Now.

Nancy 31:33
You know, one of the things that I really love about you, but that I see sometimes slips away from me is common sense. You know, is just, but I'll tell you like your your mother loves politics. Well, guess what, I love diabetes, because it has changed my life. And I kind of mean it in a tongue in cheek kind of way, you know, but thank God for the COVID because everybody was home. And so was I, you know, and I learned a lot I learned a lot. So, yeah, it in some way, you know, it's given me a new step this somewhere, you know, it's given me a new focus on my life, one that I never thought I'd have. Sure, you know, but also one that I, you know, it's good, I'm eating so much better than I ever have before in my life. I, you know, I, the doc, you know, some of my doctors are seeing a change in, you know, my makeup. My, you know, and, and all that is because of diabetes. So, yeah, so

Scott Benner 32:48
this time, this COVID time gave you the kind of the the pause to be able to really think about this whole thing and try to put it into perspective and put ideas into practice. Right? Yeah. What did you just say that I want to follow up on? Oh, common sense. Can you give me some examples of how you feel that sometimes there, it's not there for you when you need it?

You know, speaking of common sense, common sense might tell you that when you get type one diabetes, or you start using insulin, that your doctor would give you the best blood glucose meter that was available. But that's not how that works at all. What happens is the doctor gives you the meter that they know about, or the one that the practice prescribes, or, or maybe they're in a rut, and they've just been prescribing the same meter for so long, that they haven't stopped to think that newer, better meters exist. I've thought about that. And I found one for my daughter. And then after that, I was able to talk them into becoming advertisers on the podcast. So I'd like to tell you today about the Contour Next One blood glucose meter, it is a very simple device. It is easy to carry. It has a super bright light and easy to read screen, and second chance test trips. But most importantly, what the Contour Next One blood glucose meter is, it's accurate. You're over there trying as hard as you can making decisions with insulin and carbs. And the very least that you could expect while you're making those decisions is an accurate response from your blood glucose meter. The Contour Next One is that meter, it is the most accurate and easy to use meter that I've ever held. And I know in a world where people have glucose monitors now and you know using Dexcom and libre or whatever you got there, you think I don't need a meter. But first of all, yes, you do. And secondly, you're going to use one once in a while even if you don't use it that often. And again, you should be expecting accurate results. The Contour Next One blood glucose meter is easy to carry fits in your pocket. The bag that you put your diabetes supplies in, and it has a super bright light. For nighttime viewing the screens, absolutely legible block letters, I can see it every I never once looked at it like what does that say nobody got fancy with the font or anything like that. It's simple to see and interpret. And the test strips if you get a little blood on but not enough, and you go back to get more, those test strips support, Second Chance testing. So no more error codes, or the strip just failing. Contour next one.com forward slash Juicebox. Podcast things not expensive, it actually could be less in cash than you're paying right now through your insurance company. For the meter you have now isn't that crazy? You may be paying more now for a substandard meter than you would with a Contour. Next One. Just take a few minutes to find out you deserve it. It's easy to accomplish Contour Next One comm forward slash juicebox.

Nancy 36:08
What I believe is that common sense is kind of a spiritual quality, you know, it kind of it kind of surfaces if we allow it. But I think sometimes when we get anxious or you know, wound up or have a low like I had last night that won't go away, and you're thinking what the heck, I only took three units, I had 105 carbs, this doesn't make sense. You know, I'm eating and eating and eating. And of course, then, you know, that was you know, when you're 40 and it's still sitting there. But you know, so you don't have you know, it's hard to sit there and wait, you know, common sense says just wait another few minutes and it looks circling up. But yeah,

Scott Benner 36:55
but she can't because it's for it's for is it? Are you do you live by yourself?

Nancy 36:59
I live by myself? Yes.

Scott Benner 37:01
Is it a fear? Is it just like, What? What drives that then?

Nancy 37:07
I mean, the 40? The 40 does that. But you know, the 60 doesn't do it so much. But when I it's 60 and going down and then 50 and going down? Yeah. And I think it's I mean, I don't think I would pass out. But I'm alone. Yeah. You know, I'm alone. I mean, my daughter lives not that far. But right now she's in New York. So she's not stuck downstream. Yeah, she's not across the street. And I you know, I'll take her off of my follow app, continually. Because she'll call me and I'm just sitting there eating, you know, so there's no reason for her to call. So if I can see her going down, you know, sometimes I'll take her, take her off of it. But

Scott Benner 37:53
Nancy, you're telling me that the exact thing this thing is made for when you need it the most you're taking it away so that you won't, so I want to know why to not bother her or to not feel like

Nancy 38:04
you're not bother her like 11 o'clock 12 o'clock at night, you know, she has to work the next day. And I know that I'm going to come back up at 40 No, I mean, then I'm okay if someone calls. But 65 No, I'm not okay, if someone calls. And I think hers is I think hers is set at 55. But I rarely, I rarely get to 55. But, you know, occasionally I don't know what happened last night where I only gave myself three units.

Scott Benner 38:37
So when it happens, let her get woken up. It's fine. She wants to do that. You I tell you, I It's funny. This has never happened before while making this podcast, but I just had a feeling like you just said something that mimics a conversation I have to have with my mother all the time. And it's frustrating. I almost found myself getting frustrated at human use, which is what people want to help. You're not taking advantage of them. They're you're not wasting their time or bothering them that your your daughter wants to do this. And so to take it from her is is I think it's kind of sucks because she's worried about you. And now suddenly she can't see it. So it's not like she's gonna let it go. She's gonna call you anyway so yeah, I don't I know what you're trying to do. And I appreciate it. Like not to be a burden. Like that's the vibe right? You don't want to

Nancy 39:32
be Oh, no, no, no, no, no, no, no, no, no, no, just don't want to bother. No, this is the thing. If if she if she caught if she ever asked me anything about my diabetes, not anything but you know if she ever asked me how I'm doing or, you know, how's it going or, or if I call if she called me and if she didn't Tell me that she didn't like the alarms going off in the middle of the night. It might be a different story. But she's told me, I don't like those alarms going off in the middle of the night. Why?

Scott Benner 40:09
See? She's not as altruistic as I was thinking. I gotcha.

Nancy 40:13
Yeah. All right. You know, it was my idea to have her follow me.

Scott Benner 40:18
You're like, listen, I saved my life. And she's like, not if it's gonna wake me up. Exactly. She's got everything she needs out of you, I guess by now. Wow, this is a file. How do you do? You know, you

Nancy 40:30
probably got, she probably got that out of me too, though.

Scott Benner 40:34
Raise this kid. And now she doesn't want to help save your life at the end. Goddamnit. Oh, that's something. Well, how do you find day to day management? I mean, I guess that's not my first question. Let my first question be. How do you find a podcast when you're in your 70s?

Nancy 40:52
So I was in the mastering diabetes Program. And I love that. And that might be another conversation. But there was a girl in there that I was texting back and forth. And we were talking about insulin and trying to get you know, less rise in our insulin, you know, and are in our bread, blood sugar levels. And she, she recommended I listened to you. Well, your name, you know, your podcast had popped up several times before, but I thought this is for kids. I don't, I don't really want. I'm not a kid. I don't really want to talk about kids anymore. You know, whatever. Although I, I have to say I enjoy your interviews with the kids as one of the best ones that I like. But anyway, so when she sent that to me, I listened to it. And my original thinking was this is this is this is this is a guy. This is a real guy. He's spontaneous. He's casual. He, he's goofy. Sometimes he's. Anyway, I felt like, you know, when you just kind of sit, You're finally home. I felt like I was home.

Scott Benner 42:13
That's really lovely. Thank you. You're catching me on me. You're catching me a day after so many people sent me well wishes for my birthday that any? Any nice thing you say to me, Nancy right now could make me cry. So please be gentle. Okay, that was really nice of you to say thank you.

Nancy 42:30
But I want you, you know, I want you to know that. And I. And I thought, you know, I think I said maybe even after the very first time I heard you I might that might have been when I sent the very first email because I thought you know what? I bet there's not that many people that are my age that just got diagnosed and are having to deal with it.

Scott Benner 42:47
Yeah. Now it's it's not completely uncommon, but it's fairly uncommon. If you're part of a handful of people, over 60 I think that I've that I've spoken to who's been diagnosed with type one. But that I mean, you just had a confluence of bad health events at the end. I bet you without the cancer, you might have made it without the diabetes. Hmm. Yeah, you feel I think so. Yeah. I'm trying to sell my question is, so you find the podcast, and it all makes sense to you? And you start doing it, like, how do you how do you manage right now?

Nancy 43:31
Well, I'm on MDI, but I have a pump, it's gonna get trained on in a couple of weeks. And that's another chaos but anyway,

Scott Benner 43:42
worried about it, or it's just hard to get it set up?

Nancy 43:45
I don't know. It's, it's gonna be hard to get set up. I, you know, because I haven't been trained on it yet. But I said the thing I'll tell you why I've wanted a pump for quite some time. Mastering diabetes really emphasizes MDI, because they think you have more control. For the, for the way that you eat, when you eat. It's whole food plant based low fat, you get very insulin sensitive. And so So anyway, I'm very insulin sensitive. So, when I was I was on to Seba and trying to get it to stay be keep me stable. But I could tell when it I called it kick in, I could tell when it kicks in, because then I would I would drop and I could tell when it's wearing off because then I could I was rising. So I, you know, I kept thinking I would like to get a pump, but then it kind of freaked me out because I know it's gonna be probably two weeks at least, of not knowing if things are working or not. And, you know, while I'm saying this, I want to there's one thing you said that that really stuck out To me, one of the early podcasts that I listened to, and I think this applies to a lot of things that I do, but it said, within, you know, with insulin, what you said was something to the effect that if things aren't working the way you think they should, then there's something else going on.

Scott Benner 45:22
Yeah, I understand. So the way I feel about it is that once you have your settings, right, you know what you're doing. If something randomly, the way I think of it is if if the insulin doesn't do what I expect it to do, I don't think that there's like a magic fairy that's come in and messed up my diabetes like situation with my daughter, I think something's wrong. Like it's wrong. Yeah, this do what it was supposed to do. I miscounted carbs. I didn't in take into account fat and protein the way I should have this sites old. Like that's the stuff you start, like, like, I roll through my head very quickly. And it's most of the time, I have to say, for me, most of the time, it's just not covering the food correctly.

Nancy 46:05
Yeah. Well, I flew to Miami. And when I got there, my insulin, the insulin wasn't working. It didn't seem like it was working. And I, you know, and my doctor had told me, Nancy, if it doesn't seem like it's working, just give yourself more. So I had those two things. You know, you said that, you said that if something if it doesn't seem like it's working, it's probably not you, it's probably something else, you know. And she said, just use more. So I kept using more and more and more and finally, stupid that I was I primed my pen. And there was nothing came out air and myself, but I was like, oh, so I think I probably did about, you know, six or seven times. And finally, I did eight units. And finally I got a trickle. So So then after that, I was fine. So incredibly

Scott Benner 47:01
stretch, you brought that up, because tomorrow, there's a variables episode going up with Jenny and I about travel. And she brings that up about how to prime things when you're going on off airplanes. So

Nancy 47:16
that kind of opened my mind up to Oh, a pump. I know that's going to happen with me, there's going to be air in there. And I'm going to think I'm giving getting insulin. So I'm just I'm preparing myself for all the all the things that could go wrong.

Scott Benner 47:29
I guess it depends on which pump you end up with, too. Because if you have tubing, then that's more of an issue on the pod, you won't see that problem with the same way.

Nancy 47:36
Right? Yeah, I, you know, when I first listened to you, I tried to get on the pod, but Medicare wouldn't cover it the way that they cover the T slim, really, with my insurance, because I don't have a, you know, a really good prescription plan. And at the time, you know, they, which was about a year and a half ago or so, at the time, they were a prescription, you know, you got it in your pharmacy, whereas the T Slim is DME. Yeah, medical equipment, and the insulin is included. So and that goes through the DME so I'm on Medicare Part,

Scott Benner 48:16
blue, you know, just out there. Remember to prime your tubing when you get off a plane and do this. Thanks, Jenny. It describes it all really well. And that it's like a really short episode, but she does such a good job with

Nancy 48:26
it. Yeah, yeah. Listen to it. Yeah,

Scott Benner 48:29
thank you. i I'm, I'm so thrilled that you love the show. It's, um, it just it tickles me that we're the show reaches people in all kinds of scales of, you know, spots in life. And I also enjoyed when you said that you thought originally it was for children. And I've always maintained that the podcast is for anybody who uses insulin, it doesn't matter how old you are. Was it the name that made it feel younger? Was it that I was the father of a child with diabetes with part three?

Nancy 49:04
I didn't even know who you were. And I mean, I should because I said before that I knew who you were, but I didn't I what I knew was that I'd seen juicebox come up, you know, on the look. I don't know what it looks like, because I but it looks like a little cartoon. Kind of thing. Or

Scott Benner 49:20
Oh, good. No, it used to be a picture of my daughter when she was young on the thing. And now it's just a logo. So it looked like there's a kid so you thought kid, whatever it

Nancy 49:31
was, whatever it was, yeah, I just thought, well, you know, and it was juice box and I thought I've never had a juice box. So you know that I didn't fit in that category. But

Scott Benner 49:41
now this you know, I'm amazing. And you should have started listening right away when you saw it. Is that right?

Nancy 49:47
I know. I agree. 100% Yeah, no, and I mean, if I could make you cry, I hope I do. Because I think that you you the other thing that I see you is that you just the best episodes are when you're just you, you know you have a real, you're really interested in people, you're really not critical at all, you're not judgmental, you really want to help you. You really, you're very supportive. You know, I go I can I get it, if you get pissed a little bit, and you try to contain it, you know, but I just I, and I think a lot of people can identify with that. And I think that's just something that you have tapped into, you know, you figured it out. And a lot of people don't ever figure that out.

Scott Benner 50:39
I very desperately for reasons that I don't completely understand. want people to be okay. Yes, I feel very responsible for things that I'm not responsible for sometimes. You know, so you make this thing and you put it out into the world and it find somebody, and then it proves out. And then somehow that makes it feel like my responsibility to find more people. And I know it's not, and I'm not tortured by it. I'm just driven by it. So, you know, I think you are such a great example, at your age to find a thing that really, I mean, it's a podcast, it shouldn't. It shouldn't be for you, you know what I mean? Like, like, common sense would tell you like, I'm probably not talking to a lot of people in their 70s. But then here it is, and it works. And it works for you, too. And that. And that makes me happy. And it's fulfilling. And then I can enjoy that for a split second before it makes me feel like well, then aren't there more people I should be finding with the podcast?

Nancy 51:46
Wow. You know, you know, when I, when I recommend your podcast, the phrase I use the most is he'll help, you know, if you listen, you'll learn how to use insulin. Okay, you know, so and a lot of times, I'll you know, there'll be a certain like, there was a researcher that you had on that would have some kind of treatment for diabetes, and I was thinking home, maybe I should contact him to find out if he knows about this genetic predisposition or whatever. But, you know, certain certain podcasts will just ring a bell for someone, you know, sometimes it's my sister who doesn't have diabetes, but that I think that she might be interested. I think you did a nurse you interviewed a nurse one time and, and how she was shocked that what she knew about diabetes wasn't enough to help him for her to Jen, was that. Was that? Remember you, Todd? Yeah. Yeah. What's your nurse? I didn't she

Scott Benner 52:48
was, yeah, I put up an episode today, I have to tell you is probably the proudest, I've been of the podcast in a while. It's with an endocrinologist, who, if you really stopped and listened to her whole conversation, the podcast changed the way she helps people. And as she's describing, becoming educated, and being enthusiastic, and then kind of settling into the way things work, and I forget the exact for, I don't want to put words in her mouth, but maybe not doing as well for her patients as she could have, and then finding the podcast and being revitalized by it. That's the most proud I felt in a while when I was talking to some guy. So yeah, you know,

Nancy 53:31
you know what I mean, one of the things that I look, look at sometimes is I'm 75 Can I start another career at this age? I mean, I did at 57. But can I do it at 75. Because what I've learned about diabetes, and, and even the way that I eat has been so helpful, that I would love to be able and I'm a social worker, you know, so I like to help people. You know, but I mean, this is such a, such a helpful, helpful thing for people to understand, because I think once they, once they, once they really understand that they have more control over their life, and they think they do they don't have to just give into it like a deep well, you know, just keep going deeper and deeper. For some people, you know, and I know all people aren't like that, but for some people, it would make a huge difference. And I'm sure it does make a huge difference.

Scott Benner 54:27
Yeah, it's um, I think it's lovely. And I I've known a lot of people over the years who have tried to help other people, and it's always valuable and always selfless, hopefully, and they do a great job in their own way. It's when it scales up that it becomes strange, like when you start really reaching people, and it's a lot of people, you become very aware of the other stuff that you don't think exists, like you have an interpretation of me. And so does everyone else who's listening. And it's based on things that you probably think I'm doing on purpose. And many times, it's I'm not doing anything on purpose. There are times when I, you know, I talked to a guy about his automotive engineer. And we, if you listen to it, you could be confused to thinking that we talked about cars for a while. But I was talking about diabetes in my head, like I was talking about staying abreast of new technology keeping up, not falling behind. And to me, I mean, I didn't Did I do it on purpose? I did a little, you know what I mean? Like, but it wasn't some Machiavellian thing where I thought, I'll have this guy on it. It just it's the way the conversation went. And we got towards the end of it. And he said something like, well, to bring it back to diabetes. And I laughed, and I was like, nah, this whole thing's been about diabetes. I've been talking about diabetes the whole time. And he's like, Oh, yeah. And I'm like, so there, there's little stuff like that, you know, once you realize you're talking to a large group of people, and that nobody's going to feel the same way. Like, there are things about me that you like that other people hate? And probably vice versa.

Nancy 56:16
Can I Can I say something about? There are things about you that I don't like, but because the core of you? I, I know what you're, I know what you're about. I know, you're about helping people to manage their insulin. Yeah, I love that. I love that. Because that's what you know that, you know that you're about that?

Scott Benner 56:43
I have to say anything, I think that when you're when you're broadcasting to a lot of people, you there's two decisions to make, you can either be yourself and know for certain that there are going to be some things about yourself that that are going to rub people wrong. Or you can sanitize yourself. And in my opinion, then just sound like you've I don't know the best way to put it, but it's not real anymore. If you know I'm holding something back then how could you possibly believe anything that I'm saying if I if I started talking in a big fake voice, and then oh, you know, like that all was happening constantly. Even when I like when I make the beginning of the podcast, like when I'm like, welcome to the juice box, I'm kind of messing around, you know, like, by doing a stupid voice in my head, it's a stupid voice for a couple of seconds. If I had my way, the podcast would just start with people talking. Like it wouldn't even you know, but I have to brand it, I have to say this is the episode, I gotta tell you who the sponsors are. But if it was up to me, if I didn't have to have sponsors, this, you and I would have started talking, I would have hit record and that'd be the first thing you'd hear when you turn the episode on. I really don't want to shine things up too much. Because I know people who put out content like that, and frankly, I don't know how anyone listens to it. So you know, so rather me curse once and that make you uncomfortable, or I tell a sex joke or something and that makes you uncomfortable or something like that. But it's better than me, swallowing my thought and you hearing through your headphones. He was gonna say something and he didn't say it. Because then I think it sounds disingenuous. So I don't know. You have to hate me a little like, you're a couple of generations ahead of me. I must do a number of things you don't like. And that's not why. Why? Tell me why. One of the things you really don't like about me, I'm gonna start asking people what they don't like about me. It'll be more fun. Good. Oh,

Nancy 58:30
my gosh. Nothing pops in my head.

Scott Benner 58:34
See, you just don't want to say it. But you do.

Nancy 58:39
Know, I want to I want to say whatever it is because I I agree with you. Yeah, I think if we're as honest as we can be, then we're more. Yeah, more listenable?

Scott Benner 58:52
I received a letter one time from a woman who she she went on to tell me everything about me that she didn't like, and it felt a little disconnected. Like at some point, maybe she was yelling at somebody that wasn't me. But she said a couple of things in the letter. I was like, she's right about this. So but I, but I wouldn't just stop it. I just took it into account. And I thought okay, she might be right about this. Let me let me make sure I now I have a way. Like for instance, she's like you talk too much. And there's part of me that's like, well, it's a podcast, like if I don't talk, you know, like that. She's like, well let the guest talking over some guests are chattier than others. You know, like, do you want to be interested? Or do you want to sit and listen for someone to come up with a thought like I have to make a decision. But what I do now is when I make the transcripts, the service I use tells me what percentage of time I spoke versus what percentage of time the guest speaks. And I do let my eyes run over that number at the end when I'm done every time and if I see it get farther than a 6040 split. I stopped To like, like, I pay attention to that, no, I had, but most of the time, I do not speak more than 10% more than the other person. So,

Nancy 1:00:08
you know what I? What's my thought on that? I was gonna say something about that. Oh, yeah, one of the things that I think is that you we don't know which people are chatting in which people aren't because you're the one that's having to interview them. But you know, you're the one that's having to talk to them. So you're the one that kind of sit there Oh, do I have to know, are they gonna say something if I went a little bit longer, or, you know, so you're the one that has to make that decision, whereas we have to do is just sit and listen to you.

Scott Benner 1:00:38
I guarantee you that I can think of three episodes right now that if I did not spice up and get talking, you would have considered jumping out of a window while you're listening to it. I can't take this. But they were still good interviews, those people just didn't have as much to offer. In in volume, they still had good content. It just they didn't. They weren't voluminous with their content. And but I'll tell you another thing that the podcast taught me was just to slow down. I mean, I think if you go back, I'm speaking more quickly. In older episodes, I had a real desire to not let there be any pauses I wanted, I wanted it to be, you know, I didn't want you to lose interest. So I think that's helping me too. And I genuinely believe I'm doing this two years from now, I should be better at it two years from now than I am now. And I'm thinking I'm doing pretty well now. So we'll see, I

Nancy 1:01:33
think you're doing well, you know, you're doing well. But I think that sometimes, not often, I haven't seen this very often. But there are some times you get someone on there that talks so fast. It's probably nerves. But they talk so fast, that it's, you know, that it's kind of hard to keep up sometimes. Yeah. And they'll kind of curl over their time, you know, roll over there. It's probably nerve, you know, nerves. And that probably just happens in the beginning. But because I've heard you say many times that you talk fast, or the East Coast talks fast. And you know, I'm California. So you know, I don't talk fast, I guess.

Scott Benner 1:02:10
Well, there are some people I've that your pauses are so long, some of you, I can just I can hear my brain is yelling at me. It's like, Oh, my God, say something, say something, I've taken pauses. I did it once for this one guy. I loved his content, but he spoke so slowly. So I spent like an extra hour, and I took all the I took the gaps out of his of his pauses. And that's not easy to do in like, trust me, it's, it's not easy. So like, I just was like, I like what he's saying I want people to hear it. But man, if he pauses like that, again, I'm gonna like lose my mind, you know? So, and I tried to think of what it's like for you guys to listen, I also am a fan of audio. And I know what I like to listen to. And if it if this podcast gets too far away from something I would listen to, then I wouldn't even know how to give it to you. I wouldn't feel comfortable putting it out. So

Nancy 1:03:07
the format of it is so is cool. Because you know, whatever you're talking about, it seems like there's always and I used to say this, I probably would still say there's always at least one takeaway, oh, Pre-Bolus a little bit sooner or, you know, whatever it might be, there's always some, you know, some little takeaway that makes it worth listening to. And it becomes, I think it and you and you say this, too, it kind of grows in you. And then all of a sudden you realize, oh, wow, yeah, wonder how, how did that?

Scott Benner 1:03:42
How do I learn all this?

Nancy 1:03:42
How do I get? Yeah, how did I get to where I am? You know,

Scott Benner 1:03:45
same way my kids yell at their yell about their math teacher at the beginning of the year. This lady doesn't know what she's talking about. She sucks. And at the end of the year, they have good grades, and they understand the math. I don't know how it happens, but it does. Yeah, I'll tell you that part of that for me. I won't say the name of it, obviously. But there's a website that has rock solid information about type one diabetes. And I don't read I don't read it all, if I'm being honest, but I don't read it. But I know it exists. And I've seen it enough times. And I know the person who runs the site. And if you back in the day would have said Who stuff is more popular Scott's or this site, you would have just assumed that site is very professionally done. It's well supported with money, like it's done really well. But that person came to me and said, How do you get so many people to read your blog? And I thought, Wait, they don't read yours. And then we dug into it. And wow, nobody reads that site. And I'm like, but that doesn't make sense. It's full of really great information. So then I started paying attention to the site for a little while, and they were putting out great stuff. But nobody cares. Nobody's gonna read your boring descriptions of whatever it's not if people have a finite amount of time to live and then And even if it's there to their benefit, they're going to have a hard time absorbing stuff that's so dry and it's boring, you know. So if you get to listen, if somebody gets to listen to you and I talked for an hour, and they take something from it, that's terrific. But if you and I had five points to make, and I went through them like a schoolmarm, and you answered, like you were reading from bullet points, I guarantee and no one's listening to this podcast. And so I'm not gonna do that, like, off the top of my head. You were diagnosed in your 70s. That's on? That's weird. You had cancer. Right? Right. You had cancer. That's amazing. You're doing well, you learned about your family members who have cancer, you know, you have parents who are older, you found a podcast that that helped you, you've, you've looked around, you're worried about yourself and looking into it, but you're not overwhelming yourself with what ifs and y's. You talked about not looking backwards, even though you don't think you said that you talked about staying forward moving forward. And you're going to make someone comfortable, somebody is going to have gotten this. Also, you said something that I'm always thinking and never say the episodes were little kids are good. And they're worth listening to, except, you know, those are the ones that don't get listened to as much. But I still put them out. Because I know they're important. And I think people are gonna figure out that they're important to listen to an 11 year olds opinion of what it's like to have diabetes, and not you just infer what you think it's like for him to have diabetes on to him, you know,

Nancy 1:06:31
you know, shocks me about those interviews, is they age of the kids and how kind of mature they are, you know, the understanding that they have about things? And I'm like, There's no way I was like that at that age. You know, I don't know if I had diabetes early, if it would have made a difference, because I've heard from some of them, and I think you've even asked that question sometimes do you think that diabetes has, you know, changed the way that you look at things? And yeah, I don't know if they're even old enough to understand that it does. But

Scott Benner 1:07:06
no one knows how it impacts them. It but that's why you ask the questions to hear them. Think about it. Like that's they're not going to anybody who thinks that you can just say today's episode is going to be about XY and Z. And that that's going to be interesting is wrong. Anyone who thinks that when you ask someone a question, they know the answer, you're wrong. I've asked a lot of people a lot of questions. And the people who know the answer in a split second suck, it's boring. And it's an it's, and it's it's pre rehearse, they've answered the question 1000 times, I get nothing out of hearing from that person. It's not it's not valuable. That's just not real. No, it's somebody's reading their life out loud. And they, for some reason, are in a position where they have to say that a lot, I want to hear you just dig into your brain for a second, or to come out of nowhere and say, You know what, I'm losing sometimes common sense. Like, that's not a thing people would admit to, you know, and you have to have a conversation like this, if you want to get to those things. And for people who understand that, they'll listen to these episodes. And for people who don't understand that this isn't going to be for them. So that's cool, you know, but I can't make something that's for everybody. I got to make what I think is interesting, and what I think is valuable.

Nancy 1:08:21
But I mean, I think the amount of people that you have following you and the amount of people that listen to the podcast and amount of downloads is, to me is an interesting reflection of how many people are really real or identify with realness, or even common sense. Like you said, you know, how many people because you, you know, that that isn't, as I don't know, if it's not as common, but uh, you know, I was a counselor. So I met, I talked to a lot of different people. And it's shocking, that you can trust your common sense. That's shocking. But I, you know, you talk about it all the time. And I think it's, it's like,

Scott Benner 1:09:05
you know, you just have to trust your gut and see what's happening. And listen, some of those people who tried to put out content that's inauthentic. I mean, I don't know if they're in authentic, but they might not know who they are enough to be authentic. And I've interviewed people before, who don't know themselves. It's clear when you're talking to them, they don't know how they feel. They don't know why they do things. And sometimes that's even interesting to listen to somebody not understand. i I'm probably forever going to use this as an example. But there's a young girl that came on to talk about psychedelic drugs. And she wanted to talk to you want to tell people about how to use drugs safe safely. And I was like, okay, come on and talk about that. And I really, we talked for a while, you know, we were maybe most of the way through the episode, and I had the feeling like she mostly probably smoked pot and took mushrooms once in a while, like recreationally and I said you don't really do any real hard drugs just now. And there's a pause because, well, cocaine. I was like, Well, you know, but I didn't say what in the moment in the moment I just said, Okay, this is how she feels. Let her say how she feels. And you know, and but in my mind, I was like, she's the Think of cocaine as a hard drug. Well, that's interesting. You know, like, and maybe, and then I started thinking like, is it? I mean, I've never done it, but is it not? Is it me? Does she not know? It just brings up all these like, these interesting questions that should make your brain think like, I think when you're done listening to the podcast, you should still be having a conversation with yourself when it's over, or I didn't do a very good job. That's all I'm not supposed to make everything right, or answer everybody's questions or scold some girl for saying cocaine's not a hard drug. You know, I mean, like, that's not my that's not my job. My job is to let her talk about it and let you hear it. And, and see, I can't I don't how did this turn out therapy for me, Nancy, what's going on?

Nancy 1:11:01
I don't know. But let me say something. Because I, you brought up something that really had, I've been thinking about this a lot lately. I'm kind of on that about, you know, how our thinking kind of creates our reality. And, you know, what, really is reality and all that kind of stuff. But anyway, one of the things that I've been wondering about because of my age, is am I sick? You know, am I considered sick? I mean, if, when I first got diabetes, I kept hearing, you know, you can do whatever you want to do, you know, you don't have to change your life, everything. Well. I tried that. And I would have lows in the middle of a counseling session to eat or I'd have a high and have to inject insulin, you know, and I thought, What does this mean? You can't you know, you can do everything that you could do before. So I thought like very black and white like, okay, yeah, very black and white, you know, that everything I was doing before, you know, the way I was eating, I could continue eating, I could have snacks I could have. I mean, I couldn't do any of that stuff if I wanted to have a good blood sugar.

Scott Benner 1:12:13
So I think that good. Go ahead. I was gonna say when they say that, I think that's them going. I think that's them saying, You don't have to go home and pull the car into the garage and close the door and let it run. Like, don't worry, your life's gonna be okay, you can do all the things they don't say the rest of it's always the rest of the sentence they live out, you know, hey, you can do everything that you used to do with diabetes, except you better make sure your Basal insulins, right and don't go Bolus in a big meal before you go for a run. And but like they don't say that they never say the rest. They say the upbeat part. They say the easy part. They don't say the stuff you need to know. And that's the fascinating thing.

Nancy 1:12:52
And that, you know, that was the shock. That was the I think the shock with because I had seen my son, but I never really got involved with his insulin or anything like that. So I saw my son and he just looked like he was doing the same thing. He's, he's always he'd always done. But once we started talking, you know, when I was diagnosed, I mean, I have a CGM. He doesn't, you know, he, you know, one time we went in, and you know, the thing I want to tell you that you said, but, you know, I went, I looked at my blood sugar, and it was like, 150 or something. And he went, I said, what's yours, Jeremy? He runs and takes his blood sugar. He goes, Oh, my gosh, I need insulin. It's 320. So every, you know, when I'm around him, he sees the benefit of having a CGM, but he didn't. I don't think he was even aware of it before.

Scott Benner 1:13:44
I told him, Do you think he'll get one?

Nancy 1:13:47
I think he will. You know, I think he will. Um, there was one other thing I wanted to say about, about what we were talking about how life I don't remember, I don't want to make it up.

Scott Benner 1:14:03
Well, what I was gonna say is, start by talking about a t shirt slogan, you saw one point? Well, this is the point where I asked you if we've talked about everything that you want to talk about. So have we?

Nancy 1:14:18
I mean, I think so I can't think of anything that I told you how great you are. And I love the podcast and like, talk talked about the common sense that you express and you know how I share that, you know, if you want to learn how to use insulin, listen to this podcast. And I mean, those things were important to me so that you know, oh, your picture is great. This This is

Scott Benner 1:14:43
the photo that you get that you're seeing on the Zoom. That's me that's me posing in front of Mount Rainier, except you can't see Mount Rainier anymore, just because I was happy with how I looked in the photo. I don't often take photos of myself where I'm like, huh, I don't look hideous. So I was like,

Nancy 1:15:02
you know, I feel like I'm really, you know, given to you. Yeah, like I'm talking to you. I mean, I know I turned my video off for a minute. And that was, but no, I, you know, we could probably talk all day if we wanted to, but everything good.

Scott Benner 1:15:17
I'm glad so and I think you're right I am. I agree we can keep talking. I'm going to go to Home Depot with Arden now and pick out a new ceiling fan for her bedroom because hers just stopped working. And she very adamantly told me it needed to be replaced quickly. So I was like, Okay, we will Arden's body doesn't regulate temperature as well as any of us would like. So she needs to have a couple of implements around her to help

Nancy 1:15:42
her out. Unfortunately, sometimes thyroid does that.

Scott Benner 1:15:45
Yeah, that's definitely part of that. And her medications really dialed in. So it just, I just think it's gonna be her her cross the bear. But actually, she's, uh, I just ordered today, I can tell you this, because this won't go up forever. I just ordered a microphone stand today, I have her microphone, I've got the stand now. And she's on my schedule twice in the next couple of weeks. So I'm gonna record a bunch together. And I'm basically going to interviewer and then we're going to trance kind of move into the stuff I want her to know when she goes to college, and have those conversations. So I have been trying for years to get her to do this. I think I finally got her. I know she doesn't want to do it. But I don't know why. I don't know if she'll know why exactly. But she needs the she needs hours, community service hours for school. She asked her, she asked her, her guidance counselor, if I did this with this kind of community service hours. So she's going to get hours for the time she's being interviewed. We're gonna show her how to edit the show. And so she's gonna get a bunch of different stuff. Wow. But anyway, so that's, that's hopefully it'll be of some service to people when they hear it. But yeah, I'm gonna,

Nancy 1:17:03
I'm sure, you know, because you talk about her all the time. And you know what you've learned? There's one other thing I wanted to say, Okay. One time you said something to the effect. I don't know, you were talking about something and interviewing someone. And maybe you were talking about? Well, you know, when I first when Arden was first diagnosed, and I was frustrated, didn't know what was going on, took probably three or four years and you know, gradually things started, you know, I started I think what's your 500 series, you know, started knowing more and everything. And you know, when I hear that, because I've only been diagnosed for a year and a half, or almost two years. But I'll tell you, when I was first diagnosed, I read so much I learned so much. I I saw it. And when I heard the first time you say that I thought, but I know a lot. I really know a lot, you know? And then I thought how much more can I know? I mean, I'm putting 24/7 into this diabetes, you know, and how to eat and how to manage insulin, and you know, what kind of insulin and all that kind of stuff. And when I hear you say that, that, you know, it could you know, wait till you've been a diabetic for three years. And I go what, right? But but it's, it's, it's very comforting, because now I'm going to get a pump. So I know it's gonna change, you know, but it's very comforting to know that there's always more over 500

Scott Benner 1:18:31
Yeah. No, I definitely thought I definitely thought there'd be an end to it when I first started doing it, but I was just taking advice from someone that it didn't end up being great advice. They said that you'll run out of stuff to talk about. And I should have known when they said it. Like, I can't imagine me running out of things to talk about, but I meant important things. I just think it's gonna keep growing, I think, you know, algorithms are gonna come and I mean, look at you, you're gonna, you're gonna probably be using an algorithm soon. You know. And that's really exciting. And I think if we really think of you specifically, you have this kind of, like amount of time here, too. And don't get me wrong, you're very, like, you know, you again, you do not come off like you're 73 When I'm looking at you and I'm talking to you, but you have an amount of time to get really good at that. And then because there might be a day where you're a little slower, and this thing still gonna work the same for you. And that'll be amazing. You know, like there won't be as many opportunities for things to go wrong. And I think that'll be a big deal for you, you know, in your life just the way it is when in anyone's honestly. So and I'm ready to talk about that stuff.

Nancy 1:19:44
Yeah, now fortunately, I have a son that's diabetic, so he understands. So my daughter I might be living with my son.

Scott Benner 1:19:52
Yeah, well, I hope he ends up with some, some upgraded technology. I think that would be really great for him. And I want to thank you so much for doing this and taking the time out of your day to do this. It was it was really fun. And I know you were excited to do it. I could tell by your notes, so I appreciate that very much.

Nancy 1:20:10
Okay. Wow, great talking with you.

Scott Benner 1:20:13
Yeah, you too. Hold on one second. Go. Go. What? got fat? Yeah, I get getting the fans not the problem. It's that I got to put it up. And I don't know the last time I did that, and I gotta remember how to put up a ceiling fan. But now I thank you hold on one second.

A huge thanks to Nancy for coming on the show today and telling us all her story. And I'd like to thank the Contour Next One blood glucose meter for being a longtime sponsor of the Juicebox Podcast. Find out more and get started today at contour next one.com forward slash juice box. It's actually a really good website. I mean, as far as websites for medical stuff goes, it's very complete and informative. I mean that sincerely. I'm a fan of well done websites. Contour next one.com forward slash juicebox even said it again. Don't forget to head over to the T one D exchange T one D exchange.org. Forward slash juice box. Take the survey help out people with diabetes in the podcast. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.


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#610 Fort Brag on Chad

Scott Benner

Tara is the mother of a child with type 1 diabetes and the wife of Chad from episode 409.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 610. Love the Juicebox Podcast a

little over a year ago, the gentleman came on the show to talk about his child's diagnosis. That man had a wife. That person is terror, and she's here today to expand on their story. So if you want to hear the beginning part you have to go to Episode 409 For Mathias. But if you're all caught up, settle in and get started, because this is Tara, and she's the mother of a child with type one diabetes. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin. If you'd like to support the podcast and support people living with type one diabetes, all you have to do is be a US citizen who is either the parent of a child with type one or type one themselves. Go to T one D exchange.org. Forward slash choose box fill out a quick survey that can be done from your phone while you're on the sofa. I mean, on the can even I mean like while you're on the toilet, T one D exchange.org forward slash juicebox you'll be supporting people with type one diabetes and the Juicebox Podcast when you complete that survey

this show is sponsored today by the glucagon that my daughter carries G voc hypo penne Find out more at G Vogue glucagon.com forward slash Juicebox Podcast is also sponsored by touched by type one. Now you can find out more about touch by type one on their website touched by type one.org or on their Facebook and Instagram pages. Touch by type one has a mission to elevate awareness of type one diabetes to raise funds to find a cure and to inspire others to thrive.

Tara Caudill 2:05
My name is Tara Caudill. I'm the wife of Chad coddle who did episode 409 and the mother of Matthias coddle is our type one diabetic four year old.

Scott Benner 2:14
And 409 was called for Mathias is that right? That is right. I see. I thought that that or somebody said, I don't know exactly how it happened anymore. I do remember the conversation being great. And then saying one day I would like to talk to your wife and I guess this is you and here you are. Here I am. Yeah. Is it? Is it was it? What's my question? How was it listening to your husband talk about the diabetes without you having input into what was being said.

Tara Caudill 2:48
It was exciting. Because I was I was very proud of him. Not like a like pat him on the back. Oh, good boy kind of way. But uh, I was happy that he was able to voice his side of it, especially because he took he took the full brunt of it. I was gone when all of it went down. So it was nice that he was able to share his story, especially being you know, him being a dad, you know, and he's, he's the best dad that I could ever asked to be the mother of my kids, especially when you know, crap hit the fan.

Scott Benner 3:20
He's the best that I could ever asked to be the mother of my kids. That makes sense. Did you mean to say that, or did it just come out? Naturally?

Tara Caudill 3:28
It kind of just came out that way. Yeah. But you know what I meant?

Scott Benner 3:31
No, I actually I think you meant that. And I sometimes I think my wife used to speak to me speak about me like that, too. So well. I mean, he's a good mom. Like, all right. Okay. So, so this is coming back to me a little bit. You were people are like, couldn't you have just figured out what but you know, I don't know what I'm talking about before we start recording. So you were in the military, right? Yes. And your son was diagnosed, there was some like, there was some drop, give me give me your side of the diagnosis.

Tara Caudill 4:04
Sure. So I was actually getting ready to graduate basic training. This would have been in February of 2019. And I wasn't, I wasn't supposed to be able to call home this night. But it ended up being Valentine's Day night, we were able to call home. And the drill sergeants were like, you're only supposed to ask like these three questions. We were only supposed to ask like, are you coming? Do you know how to get there? Do you know what time to be there? And then we were basically supposed to hang up. But of course, we always tried to squeeze in conversation into a 62nd phone call. And so when I called Chad Valentine's Day, nice. I was like, Hey, baby, you don't have Valentine's Day. I get the call, like surprised. And he goes, Yeah, yeah. How much time do you have? And I said why not long. I just have to ask these three questions. And he goes, Yeah, okay, I got that. How much time do you have? And I was like, What's going on? You're scaring me. And he said, he's gonna be okay. But we're in the ER right now in the bias was just diagnosed type one diabetic. Wow. And it was so out of left field, I just remember my jaw, like hit the floor. I was what? I cannot have heard you correctly. Did you? Did you really just say that? And he said, Yeah, I'm in the ER with him right now. He's like, your grandma is coming up from Florida. And your mom and dad are already on the road. They're coming down from Kentucky, we were living in Georgia at the time. And we're, we're going to be fine. He's, we're going to be here for a few days. And he said, as long as everything goes, well here, we should still be at your family day in your graduation. And it was in like, less than a week. I think he had like, three or four days before they had to hit the road to make a trip to Fort Jackson, to get there for my family day. But uh, I learned on family day that he he wasn't going to tell me at first. And to give context to that, because it was so close to my graduation, he the only way he was going to be able to contact me was through Red Cross message. And he was terrified that if he sent a Red Cross message, and that I received it, that they would pull me out of training. And that was just going to delay my graduation, which you know, overall, I would have, I would have been away from home longer. And so I I did tell him after the fact I was like, I completely understand that. You know, I understand why you went about it the way you did if it had been like, right after I had left for basic and was gone for, you know, the three months or what have you. And then he didn't tell me that whole time. Yeah, words definitely would have would have been spoken.

Scott Benner 7:01
But he was making a decision because it would have kept you there longer in this moment. That's interesting. Hey, I want to digress for half a second for people who say they miss hearing Basal snore on the podcast. I think we just heard terrorists dog drink about a gallon of water during the story. She told him I right about that time. Yeah, it might have been. No, don't be sorry. That's why you don't hear Basal snoring anymore, because I moved away from where the dogs are I but I still get notes like I miss Basal snoring. I'm like, I don't miss editing out all the noise. So sorry, but But um, okay, so this is kind of fascinating, in that I don't have any military knowledge. So you're in basic training, it sounds like for three months, there's a graduation date, you have very little contact with the outside world or your family. And so your husband has to make the decision. Like if I tell her that this is happening, like there's no special circumstances where he just calls a number and says, Hey, you guys got my wife over there in basic training. And my kid has type one diabetes now like, there's no it doesn't turn into a more human interaction. It stays very military and by the rules no matter what's going on. And then if you need to have that conversation, then you have to break away from what you're doing, which elongates your time there. I understand that right?

Tara Caudill 8:21
Yeah, pretty much. I had a friend whose grandfather died when we were in basic together. And the only way she found out was through Red Cross message.

Scott Benner 8:32
And then, and that's just like a note, like, it's, it makes it feel like a telegram when you say it like that, but it just, it just comes written to you or somebody. How does that work? If that

Tara Caudill 8:42
happens, um, so yeah, they they contact through Red Cross message. I've never actually had to do it before. But um, there was a drill sergeant who pulled who pulled her aside, and I went with her as her battle buddy, because you can't be alone during basic training. So I went with her as her battle buddy to go talk with the drill sergeant. And I kind of stepped back because I realized what was happening and they handed her a sheet of paper. And, you know, they said, you know, we're sorry for your loss. You know, if you if you want to try and call home, they afforded her that opportunity, and she was able to call home.

Scott Benner 9:15
Wow. Okay, so the, the time that your husband imagines works out and they're able to come to your graduation, yes, thank God. So you see your son with type one diabetes for the first time at that moment. I'm wondering what that was like, because it's got to be an emotional day. Aside from that.

Tara Caudill 9:37
I don't think I don't think at first it really hit me. I could tell that he didn't feel very well. He wasn't his he was coming back to life, essentially. But uh, he was just eating nonstop. So whenever we went to go get something to eat for that family day. He was just constantly, you know, scuffing stuff down and Now, you know, he was Matthias was trying to eat or getting ready to eat. And it was long before we found like Juicebox Podcast or anything like that. So my husband's you know, pulling out the syringes taken out the the meter, you know, to prick his finger and everything like that. And my mom is type one diabetic. She's been type one since she was for around four or five. So it was something that I was used to seeing. But now it's my own kid. Was the complete in that it was completely different at that point. Yeah, I just, I kind of just had to sit there and be like, What? What is happening? Do

Scott Benner 10:39
you? Did you know how? I mean? I know you've had seen it with your mom the whole time. But did you honestly know anything about it?

Tara Caudill 10:48
I knew enough to help her out if she needed it. But in terms of her day to day care. I mean, she had been doing it for like two three decades at that point. So I only intervened when, when it was necessary. Basically.

Scott Benner 11:02
Did your mom have any real emergencies while you were growing up?

Tara Caudill 11:05
When I was 12, I think I was 12. So this would have been mid 2000s. There was one night my dad's been in rock and roll bands since before I was born. And he was gone one night playing a gig. And so whenever he would be gone, play a gig that night, I would stay in the room with my mom. And it just so happened this one particular night, I'll never forget it. I watched the clock strikes 12 at midnight. And then I felt the bed start shaking. And her I looked over at her and her arm was shaking, and she couldn't really talk. She wasn't having it wasn't like a full blown seizure. But her body was definitely like, Yo, you, you need to do something. And so thankfully, we had talked about it before. And so I ran over to her nightstand and I got her. I remember if something soft that she could eat or I don't think it was juice in her nightstand or anything. But uh, I helped her get that down and helped her check her sugar and called 911. And then in like, I don't know, 2030 minutes an ambulance showed up just to check her and she was okay.

Scott Benner 12:17
I had a hard time listening to that story because you said that you were 12 in the mid 2000s. And it made me feel really old.

Tara Caudill 12:25
I'm sorry. I'm so confused. I

Scott Benner 12:27
was like, I'm like, No way. No one's young, then like as like a god. Tara, how old are you?

Tara Caudill 12:33
I'm 28 Oh, my God. Terrible.

Scott Benner 12:37
Terrible for me. It's good for you. So you've got this experience with your mom, does that come into your head? Once you realize your son has type one?

Tara Caudill 12:46
It does. Because at that point, that's all that I had to go on. Right?

Scott Benner 12:50
So did so was that your expectation? Or? I mean, what could you even i This is a weird question. But could you even enjoy that day? Or is that day last?

Tara Caudill 13:02
Out? No, we were still very much able to enjoy it. Matthias was he was smiling at some point. I was able to just kind of sit with him and hold him. We didn't really walk around the whole a whole lot of places. We just kind of sat there and enjoyed enjoyed finally being together, you know, after it was like 10 weeks. So I was finally able to kind of feel like a mom again, which I hadn't felt like a mom in a long time at that point. And then so we had our family day, and then the next day it was graduation. And because of some scheduling mishaps with the battalion that I was assigned to, we got one extra day, which never ever happened. But their their loss was my game. So I obviously took the extra day. Hey, um, remind

Scott Benner 13:52
Chad Chad is the military as well. Right? Was Yes. Yeah, he still is yes. And are you as well? Yes. Okay, so how does that work? Like for scheduling? And like, are you not home for stretches of time? Is he not home for stretches of time.

Tara Caudill 14:10
So he's active duty, and I am in the reserve. So we're we're in the middle of pcse, which means permanent change of station. We actually just got to Texas this week. So I finished up my annual training with my unit in Georgia, and then kind of just, you know, waved at everybody and said, you know, I'll see you later. And so I'm in the middle of trying to transfer units right now. And that way I can stay local to the unit just because it's easier for the kids.

Scott Benner 14:40
Because if next time you have to go back you have to go back to Georgia. Yes. And Chad So, Chad's in Texas, he's, he's active in Texas.

Tara Caudill 14:52
Mm hmm. Yeah, he just finishes his like job as a recruiter and the army norm He kind of made him do it. He didn't really want to. But so now he's back here. And once his leave is over here and like the next week or so, he'll be going back to his regular, his regular army job as a cab scout.

Unknown Speaker 15:14
What is that?

Tara Caudill 15:16
Cavalry scout? They're like the eyes and the ears of the commander on the battlefield.

Scott Benner 15:20
Okay. Yeah. Project manager.

Tara Caudill 15:25
That's one way to look at it.

Scott Benner 15:27
It's an odd way to look at it. But it's the first thing that I thought of. And what did you What was your specialty? When, what? What do you do?

Tara Caudill 15:35
So I'm an intel analyst.

Scott Benner 15:38
Interesting. Does that help with the diabetes at all?

Tara Caudill 15:44
Um, it can now that it's another way that I've learned to think critically about the information that I have. So I can I'm getting better at being able to go okay, what is happening here? And then what are the changes that need to occur so that this low or this high doesn't happen again,

Scott Benner 16:05
kind of Gotcha. Are you having luck with that? Are you having more long stretches of stability with blood sugar's?

Tara Caudill 16:13
I think we're in the middle of his Basal needing to be changed, because I had to bump it up the other night, and it worked fantastic. And I was like, Okay, I might be on to something. And then last night, it was causing him to try and go low a little bit, so we'll just have to tinker with it some more until we get it stable again.

Scott Benner 16:32
Okay. Has your mom because your mom was diagnosed in a different era of diabetes, obviously, but Has she had any insight that's been valuable? Or has it been the opposite? And what you're learning about Matthias is helping your mom or do you guys not talk about it?

Tara Caudill 16:50
Oh, we talk about it all the time. Okay. All the time. Especially when he was, you know, first diagnosed because I wasn't home. Like I saw them for the three days. And then I left Fort Jackson, South Carolina, and then I went to Fort

Scott Benner 17:09
tear you broke up

she'll be back. She's a little bit of a connection show. If I had a bugle I could play Reveley while we were waiting, but no, I'll try with my hands. Tara

that's all I remember. I don't know if that was right. Alright, she's gonna bounce back in a second. Hello. You left for Jackson?

Tara Caudill 17:43
Yes. So I left for Jackson. My bad.

Scott Benner 17:46
No, don't worry about it. I am assuming that they moved you into the middle of like the Texas desert or something like that. Or you're like out west or where are you at?

Tara Caudill 17:55
Now we're in a clean right outside Fort Hood.

Scott Benner 17:58
Okay. Well, they need better internet there.

Tara Caudill 18:01
They do. Yes, I agree. I just I just moved my phone to the opposite side of the house. So hopefully that'll help.

Scott Benner 18:07
Oh, no kidding. Okay, go. Well, I have my fingers crossed. But you were saying you had just left for Jackson, which made me think of Janet Jackson song where she calls herself Miss Jackson. And then you disappeared.

Tara Caudill 18:20
Yeah, so I left for Jackson and then went to Arizona. And I was there from, I think the end of February until the end of June. And then I finally came home the end of June of 2019. And that's when I really started to be able to dive, dive into the diocese care and my mom's my mom's perspective and her experience and everything with that. She had already told Chad so much. But even in a it where I got a little bit more freedom, I could call home every night if I wanted that there's just so much time that you know we had to do for learning our job and whatnot that it didn't really happen all that often. So when I when I was finally able to go home, I called my mom probably every day, or at least texted her and was like okay, I'm doing this just is like another witness while Chad was gone at work. Oh, hey, I'm gonna do I'm gonna do this. So

Scott Benner 19:24
if anybody has any reasons why these two shouldn't get married speak now for like, if anybody has a thought I want to hear it right this second. So you felt very uncertain for a while.

Tara Caudill 19:34
For probably the first few days at least? Yeah. Just where this was. This wasn't you know, helping my mom who could tell me yes or no, this was helping my two year old who could barely say hello. You know, so when Chad left for work, the first day after I got back home he he looked at me and he was like so I'm not trying to sound like I don't trust you. But please call me every time you're going to Bolus every time you're going to feed him. That way I can be like, yes, no, heck no. What are you doing? So on and so forth. And I was he, I was like, that's perfectly fine, because I don't want him to go into the hospital again. And especially, it'd be my fault.

Scott Benner 20:23
Your fault. Interesting. How long was Chad, the sole caregiver of the diabetes before you were home?

Tara Caudill 20:34
So February, March, April, May, June, but for four months, okay, give or take.

Scott Benner 20:42
Okay, yeah. So by then, it must have been incredibly difficult for him to just hand the thighs over to a different person, like, forget that was you just the two different person once he probably started feeling like I understand this a little bit. And I know how hard it was to figure out this much. And now she's gonna start over. And then the specter of what could go wrong just lives in your head. That said, that's interesting. You guys didn't actually get to do it at the same time. But looking back, do you think that was a benefit? Or do you think it slowed down your progress?

Tara Caudill 21:18
I think it ended up being a long term benefit, because it forced me to have to be able to eventually do this on my own.

Scott Benner 21:26
Okay. And you got you got the benefit of what he had figured out already. So you weren't starting at zero? You started a little bit in the On the plus side. But does what he says jive with how you think or do you have to remaster it for yourself she's gone again and that was such a good question.

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If you're looking for an online community, look no further than Juicebox Podcast type one diabetes on Facebook. It's a group that is private and has over 20,000 people in it just like you sharing support and knowledge. It's absolutely free. It's a great resource. I hope you take advantage of it Juicebox Podcast type one diabetes on Facebook. And don't forget, take that survey AT T one D exchange.org. Forward slash juice box. You'll help people with type one diabetes and you'll help yourself you'll even help the podcast T one D exchange.org forward slash juice box. Are you looking for the diabetes pro tip episodes look no farther than diabetes pro tip calm. You can also find them at juicebox podcast.com. You can find them in your podcast player and their extensive lists on the Facebook page Juicebox Podcast type one diabetes if you've been searching for those diabetes protip episodes the defining diabetes series The diabetes variable series ask Scott and Jenny there are so many resources around using insulin on the Juicebox Podcast you just have to know where to look alright, show's gonna start again. You're ready you know I'm going to get Tara back connection is going to be fine. Everything's good here we go

I don't want to forget the QUESTION All right. What I said was you guys should try talking off the top of your head like this for an hour it's not easy did hearing his thing make it easier? And what happens when not doing the bugle find your young kids. You wonder it's not happening. I'm just talking to myself because you're not ever gonna hear us

don't wake up didn't Tintin. Tintin. Tintin? That's the second part of it. I know this from Mash God, you know, man, I'm leaving the sun. Hey, Scott. Hey, get some tinfoil wrapped around your head.

Tara Caudill 24:58
Right. I think I I think what I'm gonna do, just to see if this will make it easier is I'm going to use my phone as a hotspot because I should still have zoom on my laptop, okay? And our hotspot right and laptop with my phone and try and jump on there and hopefully it won't, it won't keep disconnecting because we have T Mobile, and T Mobile is apparently not super good in this area.

Scott Benner 25:22
Perfect for you. So, right, um, do you didn't need to jump off and jump back on?

Tara Caudill 25:28
I'll see if I can sign in on here. Okay. And then

Scott Benner 25:33
I'd such a good question. Just read. I'm like just all I'm doing is sitting here trying to remember my question.

Tara Caudill 25:39
Okay. I'll stay quiet. No, no, no, no,

Scott Benner 25:42
I've already. I've already played Reveley on my hand bugle twice. So nice. As much as I can remember from Mash.

Tara Caudill 25:49
Oh, I used to watch mash sometimes.

Scott Benner 25:51
Yeah, you're young, you wouldn't enjoy it. I love the mash.

Tara Caudill 25:55
I just remember that radio was the only original character radar. Or radar doesn't radio. But he's

Scott Benner 26:02
not the only original character. Oh, you mean the only real actor from the movie? Actor? Yes. Yes.

Tara Caudill 26:07
Yeah. All right, let me see. Pull up my email here. Chris. My emails taking forever. Just box,

Scott Benner 26:16
click this link you're needing to my mom just texted me. How's the podcast? Not great. I'm gonna admit you, but we're gonna get some weird sound stuff. You should jump off on the phone now.

Tara Caudill 26:44
All right, what about now?

Scott Benner 26:46
Well, let's talk for a second to find out. Alrighty. Let me uh, let me ask my question again. We'll see where that goes. Okay, so I was wondering if Chad's experiences were helpful for you in the beginning, because sort of like a launch spot. But but then I was more interested in whether his stuff one to one translated to you, or if you had to kind of hear what he was saying, and then re engineer it so that it worked for your brain.

Tara Caudill 27:21
I definitely had to do some relearning just from growing up with my mom as a type one. One because now I was the caregiver. Or one of the caregivers. And with my mom, I wasn't I was, you know, I was there to help her if she needed it. But most of the time she didn't. So when it came to some of the advice that my mom would give, it wasn't that she was wrong. It was just That's how she had always done it. And she's a grown woman, not a, you know, a two year old. So there were things that we had to, you know, figure out, Okay, what if we take her advice, but just like re engineer it? Kind of to like use your words. So that it would so that it would work for Matthias especially when he was still MDI.

Scott Benner 28:09
Okay, so he it's interesting. So your husband has no background in diabetes at all. He at least knows your mom had it? And has it understands your way. Is Chad, like in a normal situation where all three of you are together? If this happened? Who would this have fallen to?

Tara Caudill 28:33
I think it would have been fairly split between the both of us that's that's how it is pretty much now.

Scott Benner 28:40
So you think even in that moment, you guys would have split the duties up? It wouldn't have been like here, this is more you or more him?

Tara Caudill 28:48
Yeah, I think it would have it would have still been 5050 as much as possible.

Scott Benner 28:51
Okay, cool. So you guys do everything like that.

Tara Caudill 28:57
With me everything with like life, the type one No, just like I think when I think when we recognize, hey, someone is more up to speed in this area, we kind of, we kind of let the other person teach us, you know, or, or vice versa. And then when it's time for the other person to step up to the plate, we're like, alright, you know, go out there and do your thing. And then

Scott Benner 29:21
you guys have a good relationship like this, the army help you with that, that idea of working in a team.

Tara Caudill 29:28
More so now because a lot of a lot of the ways that he talks, some of the just the lingo and just the way that his mind works now. He's been in for 10 years at this point. So now that now that I've gone through basic and the it and I've just been with my unit for a couple years now. There's conversations that we're able to have that flow more easily just because we are both in the military now.

Scott Benner 29:53
Yeah, I imagine you guys planning on having other children

Tara Caudill 29:59
so When Chad did his episode, I was getting ready to have our second born.

Scott Benner 30:06
Oh, baby. How old is the baby now?

Tara Caudill 30:09
He is six months old.

Scott Benner 30:10
Oh, good for you. It's exciting, or is it? A lot of work? And you're like, Oh my God?

Tara Caudill 30:17
Oh, no, it's it's definitely exciting. It is a lot of work. I mean, I've never had two kids before. So

Scott Benner 30:22
yeah, are you? Do you have a level of concern about your newest for type one? Or how does that strike you?

Tara Caudill 30:32
We really don't, I mean, we're aware of it. But it's, we're not plagued by the paranoia of it. And we're doing our best to keep it that way. When we found out that I was pregnant, we talked about doing the testing to try and figure out like, what, like, what chances he would have of developing it. And then we kind of just let the conversation go and just kind of enjoyed, you know, getting ready to have a second baby. And then after he was born, we talked about it again, and we we just kind of determined we're, you know, we're more aware of like the symptoms and kind of what to look for. So we weren't going to, we weren't going to what could be just wasting time, just waiting, you know, to end up having to take him to the ER. And that kind of came, that was one area where my mom was really able to help. Because when I was born, you know, it was pretty rare for a type one diabetic to have a healthy pregnancy, let alone the baby end up not having any complications or anything like that. So when I was born, and then as I started growing up, my mom would take me to the pediatrician. And she would ask, you know, what are the chances of, of terror developing type one. And my pediatrician always told her, there's a test that you can do to find out, but unless you unless you really, really want to know, she might never ever develop it, they said that there was probably like less than a 4% chance that I would ever develop it. So my doctor's advice to my mom was just enjoyed the time because if you do the test, and you spend all that time wondering, you're, you're going to be 70 And your daughter is going to be 50. And you're going to be on your deathbed going man, I didn't get to enjoy any of the childhood because I was just waiting for the tragedy, quote, unquote. And I'm almost 30 And I've, I've never in no way developed

Scott Benner 32:42
it. Right. So she just was able to take that advice and, and live that way. And you're gonna do the same thing. Cool. Oh, I listen. I think there's, there's a couple of different ways to think about it. And I feel like all of them are very valid. And that what you just described is one way that I hear people talk about it. So I think that's perfect. I was just wondering your perspective on it. That's a that's something so you guys have a young family, you've just really paid relocated to Texas. Do you think you're gonna get to stay in Texas? Or do you think you're gonna have to bounce again?

Tara Caudill 33:14
We'll have to bounce again. But we'll be in Texas for at least a few years. Okay.

Scott Benner 33:18
That's pretty cool. Is that just standard military life? That's never gonna change?

Tara Caudill 33:27
Uh, yeah, pretty much.

Scott Benner 33:30
And so. Okay, so Chad's active, so he might have to move around a lot, which makes you have to get find your way into the reserves wherever he lands. And are you in military housing? Or do you own your own house? How does that work?

Tara Caudill 33:48
We actually just bought our first house we closed on it this week. And you're

Scott Benner 33:51
in it right now.

Tara Caudill 33:55
Yeah, we're just waiting for our household goods. So we're we're still working with the air mattress situation and and all that good stuff.

Scott Benner 34:04
Is Matthias having fun. Is it like sleeping over for a while?

Tara Caudill 34:08
Yeah, he seems to be enjoying himself. We actually just got him his first actual like, big boy bed not toddler themed or anything so. So he's not sleeping in his little monkey sleeping bag anymore.

Scott Benner 34:21
What's he about? Like five or six now?

Tara Caudill 34:24
He's four. Now four.

Scott Benner 34:25
Wow. Why did time feel like it move faster for me then? Like I was just thinking about? I guess it was only 2020 when Chad was on. I see. I think I think ahead so much about the podcast in my mind. It's 2022 already. So I'm like adding two years to his age and thinking like he's gonna be five or six. Right? So he's four. So how's he doing? Like, how is how is diabetes going?

Tara Caudill 34:52
Ah, it it's going pretty well. He had his last endo appointment in Atlanta. It was As to it was last Friday. And his a one C I think it was 5.5, I think is what Chad told me. That's so cool. With like, I think like 80 to 90% time and range somewhere around there.

Scott Benner 35:16
I liked it. It's so much in the fives that you're like, I don't know, it's like a five and a half. Mr. Chad took him to his appointment. You were not with him was that? Does that kind of normal? Does just one of you do it? Do not usually both go

Tara Caudill 35:31
on normally, because the couple of times that I've had to take him Chad would be working at his recruiting station. And then this past time Chad had to take him because it was my last day of annual training with my unit. So I had to go there.

Scott Benner 35:43
Okay, so whoever's available goes, I Yeah, thinking I don't think Kelly's been to like, maybe three appointments ever. Like it just doesn't work that way for us. Like she's usually working and, and I'm doing stuff like that. So that's interesting. Like, you guys can just easily switch off and back and forth. So does he come home? And like, I guess not right, like things are going well, but it's not like he comes home and gives you the report. I guess he just didn't like, Go, is it kind of like that? Yeah,

Tara Caudill 36:13
pretty much. I mean, if if there's, there's always like the paperwork that the end knows will give, you know, at the end of the appointment. And so I might look over the paperwork, and you know, make sure that whatever prescriptions need to be renewed. We're on there and whatnot. But before we moved, we actually were pretty fortunate. And we got a buttload of pods and DEX columns, and we got a handful of, you know, new vials of insulin and stuff. So, so we were set for when we were getting ready to hit the road.

Scott Benner 36:44
I'm plus, no matter how good Chad is this, he's still a boy. So you have to double check on him. Because, right? I mean, we do we

Tara Caudill 36:51
know he, he's very much. So I cannot brag on Chad enough. I really can't. Whenever I tell people about our, you know, our little experience with masseuses diagnosis, I have to remind people if you'd like I was gone. You know, Chad really had to step up to the plate and make it work and he did in more ways than than I could have ever imagined. And so then when they came for my family day, right after with ISIS diagnosis, I could not hug him and hold him and just tell him enough I'm thankful that he is with irises dad and not some some other man who whether it be due to fear, or just a lack of concern would not have handled it as as well and continues to handle it as well as Chad does.

Scott Benner 37:42
I remember being really impressed when I was talking with him. And even your your recollection of it makes that more so for me. So that sounds very sweet. But you could kill me like six different ways. Right? How are they taught? You?

Tara Caudill 37:55
Know, that's not really my job.

Scott Benner 37:58
They don't make you understand that a little bit. Yeah,

Tara Caudill 38:01
I understand it. But I'm not. I'm not like boots on the ground. That's not That's not my

Scott Benner 38:06
alright, but I feel like if I ran it, you you would punch me in the face and I'd fall over? Is this true or no? Just like think you'd run away and be like, I'm trying to analyze data. Could someone stop this guy from running it? Throwing my clipboard at you I've analyzed the situation and someone with a gun better get over here. Right?

Tara Caudill 38:31
No, like real talk. Like if it's if the fight is getting bad enough to where I have to pull out my rifle, then we're losing. Now not because, you know, not because, you know, I don't even know how to describe it. But that's that's just not my I'm not outside the wire

Scott Benner 38:49
when the people have to go find their gun. And it's under something that those are not the people you want. And

Tara Caudill 38:57
exactly everyone else has died.

Scott Benner 39:00
Under the bar. Hold on a second. Can everybody wait? I don't remember where I put it. Yeah, I have to save this thing I'm working on I want to lose all this work. Right. Now. That's the military really is just like a big business, right? People just do different things. And there's different sections and people who don't know one thing about the other side of something else. Yeah, I mean, it makes sense. Just that you know, in your mind you're like, it's it's hard to imagine for somebody who's never been involved in it.

Tara Caudill 39:29
In the movies, everyone, everyone in the movies is infantry. And that's just not true. I mean, we're all taught, you know, basic combat training, but

Scott Benner 39:37
Right. Gotcha. Maybe you could get out of a scuffle on a 711 Okay, better than me. Yeah. Yeah, I could do that. I could do. Yeah, I don't know. That's kind of there's something great about just understanding how to protect yourself a little bit. That is a it's interesting to me. Do you think that little Going forward, I know this is tough, you're such a young family, but Mathias can't join the military right? Now, do you think that's gonna be an issue? One day?

Tara Caudill 40:12
I have thought about it. He has definitely pulled out like his little Nerf guns and be like, Mom, I'm a soldier like you and daddy, and it like, warms my heart. And then you know, you kind of have that moment where you're like, but you can't really be one. But he's four, just kind of, yeah, you just kind of let him run with it. I mean, we definitely don't want to be the parents who go, you know, you have type one, like, you can't do this, like we let him. We let them do stuff like every other four year old and we just try to manage it so that he can do all of those things. And if we have to call him over to give him a tab or something, it's two seconds out of his play time. And then he just goes right back over.

Scott Benner 40:51
I imagine there's a time when he'll have better understanding that you'll that you'll say it to him differently. But I have to agree, I don't know that trying to explain to a four year old that you can't serve in the military, because the diabetes is is a valuable use of anybody's time or effort. Yeah, cuz he's not going to take it correctly. And then he's going to start wondering what else he can't do. And it just happens that he picked the one thing that he can't do like to ask you. I mean, you don't want to give him the feeling. There's so many other things because I can't think of anything else really. You know, even the being a pilot thing seems to be going the right way.

Tara Caudill 41:28
We have told him that. As he went through a big plane phase, we live near an airport in Georgia. And every day is like mama has a play. And I'm like you want to be a pilot. But you go ahead and you be a pilot. He's like, Okay, I'll be a pilot.

Scott Benner 41:42
So great. When they're little, you could pretty much get them to say you're doing thing. You want to be a pilot was

Tara Caudill 41:48
in? He wasn't. We got him enrolled into like a taekwondo class last October. And so he did taekwondo at this at this studio. Not too far from our house up until we moved. Was he enjoying it? Oh, yeah, he loved it, he was actually able to be accelerated so that he could get his tiny Tiger black belt before we moved. Oh,

Scott Benner 42:14
that's cool. tinies Hydra black belt, probably the name of the episode. That's fantastic. Amazing. So he's just out there rolling around with other four year olds, and they're like working on moves and trying to understand like the real basic stuff. That's amazing. Yeah. How was that on his blood sugar? Oh,

Tara Caudill 42:35
it was it was pretty well, we definitely tried to do our best to monitor when he first got there, just because we didn't know exactly how the class was going to work. But uh, you know, there would be times it was only for 30 minutes. So I mean, we weren't able to see any super long term effects, because he would be running for an hour or anything like that. But especially if there were days where they did the obstacle course that they had set up for more than 1015 minutes, you could sometimes start to see, okay, we got to, we got to pull back or push forward on the Basal just kind of whatever, especially with him being so small.

Scott Benner 43:14
He has little, how much does he weigh?

Tara Caudill 43:17
He's around 40. I think 40 pounds now.

Scott Benner 43:21
Oh, I remember. My kids being small like that. It's so nice. It's hard to to look, I'm starting to get to that age where it's like, pretty obvious. I can't have kids. You don't I mean, like, just because of my age. And I don't I don't want to be 75 If someone's like, you know, assuming I can make it to 75. I don't want to be 75. It's somebody like high school graduation. It's sad. Like you think like, oh, like I never thought we were going to have more kids. And yet now, knowing that it really can't happen or won't happen is it makes you think back to all this stuff. It's interesting to hear you talk about do you think he'll keep doing the taekwondo who you find we look for a dojo in Texas.

Tara Caudill 44:02
Yeah, he said he wants to keep doing it. So I'm actually trying to get into jujitsu once we get settled down. And, you know, like, redo our budget. And so if he doesn't want to do taekwondo, you know, he has told me he wants to try jujitsu. Not that he knows what the differences are. But uh, they have kid classes at the gym that I was looking at. So if he wants to try that he can do that. He said he wanted to do a dance class at one point, and I was like, you could but we've already paid for taekwondo. So let's just keep doing that. Okay,

Scott Benner 44:32
let's finish something up first, and then we'll start Yeah, thanks. Oh, wait, do you see I was just telling. I was just yesterday on the phone, ordering training equipment that my son needs. And the guy and I'm looking at the price I'm like, oh my god, like I'm like getting ready to give the guy the credit card. And I just said to him, he's a younger guy. And I was like, Look, you're gonna have kids one day and they're gonna want to play baseball, maybe and Just remember, if that happens that 20 years later, you're still going to be involved in buying stuff for baseball, standing on fields getting weird tans, not going on vacation, because that's when baseball is played. I was like, that's a big step. I was like when your kid asks for baseball, like really make sure you mean to say yes. Because it's like a lifelong if you keep playing. It's a it's a lifelong, you know, commitment. I like the idea about jujitsu like you just like skip a class and go on vacation and come back and do it again. That sounds that sounds enticing to me. I'm starting to think if I could go back in time, I'd be like, what about this? You know, like, Would you like to look over here instead? I didn't realize when I was young that baseball gets played when everyone's on vacation. So if you play baseball, you don't go on vacation? Like little summers playing baseball. Yeah, you know what I mean? You're just like, wow, and plus my arms get really tan. And then my shoulders are white. I look silly when I take my shirt off. So anyway, well, you guys have a really, I mean, for as crazy as your launch into this was, now's going pretty smoothly. So what is it you're doing that's, that's working. So on a five, five for a four year olds pretty impressive.

Tara Caudill 46:21
Having your podcast in your resources has definitely been the biggest help Chad introduced it to me when I was in AI, T, back in 2019. And so and then he got Messiah set up on the Dexcom. And so he introduced me to like the share app and everything with that. But uh, I was gone. And in class so often for learning my job that I didn't really get to watch his sugar throughout the day. And so I was more. It was more just kind of Chad learning stuff at home and implementing it, you know, like, the same day or shortly after, and then telling me, like, Hey, I learned about this today, I'll never forget when he told me about Pre-Bolus thing. It rocked my world really how it rocked my world. Because with my mom Pre-Bolus thing was never a thing. It was just it wasn't like a bad word or anything. It was just, it wasn't a concept. Yeah. And so then when Chad told me, he was like, hey, you know, like, I heard this podcast and this guy talks about Pre-Bolus. And I was like, What in the world? What is that? He said, You give the insulin before they eat, and you try to time it so that when the insulin starts working, it kind of like fights the carbs in the food. And I was like, That's genius. It's like, why is this not a thing? Like, why don't they teach you that coming out of the hospital? He's like, Well, he's like, I kind of get why they don't do it. But it's definitely more useful than waiting for him to go high. And they go, Oh, okay, now he needs this much. And then and then just missing it all together. Yeah. So then Pre-Bolus He was definitely the biggest help. And we got him on the Omnipod dash, like the week I got home from it. So that was my first appointment that I went to and actually funny story. Jenny Smith was the one who taught us and trained us for the Omni pod.

Scott Benner 48:24
He used integrated for that.

Tara Caudill 48:27
I had no idea what it was at the time. She was just the one who was at a children's hospital of Atlanta. And we walked in for our appointment to get him set up on the pod. And she's like, hi, you know, I'm, I'm Jenny Smith. I'm going to be training you for the Omni pod today. And then it was probably a week or two later. I guess Jenny was on one of your episodes. And Chad was like, I think this is the same Jenny who helped us with Don.

Scott Benner 48:52
I have to tell you like what it's very likely not Jenny doesn't live in Atlanta. Reality Yeah, you might have a different Jenny Smith. Is there another Jenny Smith out there that works in diabetes? Please contact me. Super interesting episode. Yeah, Jenny lives in Wisconsin.

Tara Caudill 49:11
I thought maybe she had just like traveled for something and was in the area or some I

Scott Benner 49:15
don't know. Tiny woman. Very happy. Jenny was in it. Yeah, I'm gonna ask her if she was in Atlanta doing something. And that was, that would be it would

Tara Caudill 49:25
have been. It would have been the summer of 2019 All right, I can July she's

Scott Benner 49:30
gonna laugh she laughs every time I asked her something so she'll laugh. And then she'll be either telling me like that was me or no, that was not me. And I will let you know.

Tara Caudill 49:38
There's gonna be more intriguing if it wasn't her because I'm gonna be like, Oh my gosh, she was that

Scott Benner 49:43
it's another Jenny. And she did she worked for the hospital or for the for Omnipod

Tara Caudill 49:51
I'm really not sure that was the only time that we ever met her. Yeah, every every other time we went there. It was either his regular and no or one of the like.

Scott Benner 50:00
All right, so I'm going to tell you, it's likely not her because she doesn't work for an institution. And she doesn't work from the pod. So Gotcha. If that is fascinating, the other Jenny Smith, I swear it was a Jimmy Smith, we might have knocked off the title of the episode and come up with another one. Interesting. Although

Tara Caudill 50:19
I remember she she was also on the Omni pod because Matthias was trying to mess with her PDM and we're like, buddy, like, No, dude, don't do that. You're gonna mess it up. And she's like, Ah, he can't hurt it. And I was like, because at first I thought it was just like a demo Omnipod that she had and then it and then I realized, no, it was actually her pump. And I was like, okay,

Scott Benner 50:37
alright, so I'm now googling because I'm fascinated. Was she? Does she have dark hair? She did. Yeah, I don't. It's so that's definitely not Jenny. Jenny has lighter hair. But I'm looking at a LinkedIn profile. Jenny Smith, clinical services manager, diabetes nurse educator, Georgia, clinical service manager for insolate starting in 2019. insulet. Makes Omni pod. Okay, Jenny, if you want to be on the podcast, and you ever hear this, you can come on because now I want to talk to you about this.

Tara Caudill 51:12
This is like Jenny inception. What is happening?

Scott Benner 51:17
Are you just a you're not just over there trying to name the episode at this point, are you? I'm not know. Because Jenny Inception is tight. That's gonna be that one I wrote down. You knocked off the little tiger blackbelt blend. But anyway, now I'm just interested in the power of the podcast. I'm not now I'm interested. If I hear from Jenny Smith, who works for Omni pod. I want to find out if it reaches her or not. Isn't that fascinating? Okay. Yeah. And this kind of be a common name No, Jennifer might be. I mean, Jennifer was pretty

Tara Caudill 51:51
common for me growing up and then Smith, it's just a common last name all together.

Scott Benner 51:55
Yeah, I can't wait to tell Jenny about this. She's gonna be she's gonna be just, like, enthralled with this idea. So your suggest Pre-Bolus thing was a big deal to you? Very much so and not something anyone else had talked to you about? Okay. And now moving forward. I mean, a five, five indicates a really good grasp, or you're having a lot of lows. And you're not telling me but I don't think that's the case. So now, do you have a firm grasp of what you're doing?

Tara Caudill 52:27
I like to think so. Yeah. I

Scott Benner 52:29
mean, you have to if you're five, five. I mean, he's not eating like sawdust or something. Right? Like he's eating. You're not feeding them. Just like, you know, here eat this. It'll fill your belly. It's like real lazy eating like a fairly like American. I mean, you're in Texas, right? Like you probably eat. Like you probably kill things with your hands and then cook it on a grill and stuff like that. Like you've been in Texas, five seconds. You're like, I don't know what they do here.

Tara Caudill 52:55
We were here once before Chad. Chad's actually been stationed here before, but I only lived here with him for two months. And then we PCs to Hawaii where Matthias was actually born.

Scott Benner 53:05
That sounds better. Not that Texas. Sounds bad. But Hawaii sounds great. Yeah, okay. So I mean, but he's eating a fairly American diet, I imagine.

Tara Caudill 53:16
Oh, yeah, we do try to keep it more healthy. Like, instead of just shoving glucose tabs down his throat and figured out we could give him a handful of grapes, like however many. And it essentially worked the same way. So that way, he wasn't getting district sugar. He was also getting some nutrition. So try to sneak it in when we can.

Scott Benner 53:35
Right. I heard somewhere recently that that grapes hit pretty hard on the glycaemic their glycemic loads pretty hard. Where that might have been anecdotal. But that makes sense to me that it would work for a low, and if he can eat them, then cool. You know? Yeah, I agree better than a than a tablet. But I mean, seriously. So you have like stability overnight at a lower number, I'd imagine right?

Tara Caudill 54:02
Yeah, with the exception of I think his Basal were just in that funky time where it might need to be adjusted again, for a while it was at about a quarter unit throughout the night. And that seemed not I'd say about nine times out of 10. That seemed to work unless we just missed, you know, some protein or fat from dinner. And then he had to fight that off forever.

Scott Benner 54:27
But I'm saying like, generally speaking, you see the bill. I'm just guessing, do you because I'm maybe I'm wrong. But do you see stability overnight more in the 80s and 90s than not? Yeah, I would say so. Yeah, I mean, because five, five, the way you get to a five five is pretty is pretty common. You have to have, excuse me overnight stability. That's more in the 80s. You have to not see a lot of spikes at meal time. And you have to be in a situation where you're not correcting a lot of lows. Food. Does that describe your life? Yeah, pretty much. Yeah. Wow, you got all that from the podcast? Yeah. Cool. That's a really amazing. I don't even know.

Tara Caudill 55:14
Chad also found the sugar surfing book a long time ago. Okay. And so and so he read that and that really helped him good. And then we actually learned what I really learned the other day, the doctor who wrote that book. He's actually just over in temple, which is like, 45 minutes away from here. So we're definitely going to try and get him as the diocese and No, but

Scott Benner 55:36
that's cool. Yeah, he's in Texas. He was on the show, like at the very beginning of the show. I remember that. Yeah. i It's been like, it's got to be seven years ago. But I always enjoy telling the story that like he was only on because listeners asked for him. Like I didn't I had never heard of him before. Not to say that. That's a distinction, but I just didn't know who he was. And a couple of listeners that can you get this guy, he wrote this book. And he comes on. And he's talking and I remember being 1015 minutes of the episode, and just like blurting out to him, like, you do what I do, you just call it something like I was it struck me in that I was like, oh my god, like, he knows this too. I was like, This is so cool. Get you know, so really interesting, and, and, by all accounts, a lovely man, so that if you could get him, I think that that'd be really great. I mean, he you'd probably he'd walk in, you'd walk in there, and he'd be like, you guys know what you're doing? And that'd be that. But no, I mean, now that you have some proximity to him, that'd be really cool. Excellent. Well, I'm just thrilled you guys are doing well. Like your story's incredibly uncommon in the way it happened. But it's fascinating and in how quickly you guys pull it all together. You know, like, really? It's, it's, it's laudable. Do you ever, like sit back and take a minute to be proud of yourselves?

Tara Caudill 56:59
We have done that before. Yeah. I feel like if I get wrapped up in how well things go, then the next minute it just, it gets out of hand. Because some days you have you have like a handful of days where you almost start to feel like yeah, I really, I really got this down like, I am the PDM you know, I am the insulin and then the next day, it just kicks you in the butt and you're like, I should not I should have just let it be. I should just wave that it is a web by should have never made a big fuss about it.

Scott Benner 57:31
You feel like the world is seeing you celebrate that. And karma is like hold on. We'll just We'll fix this up for you. Just watch this. People say that. People say all the time, like the minute I take a screen capture and I share something with somebody it goes wrong. And I'm sure that's just you know, Murphy's law. But uh, you know, I don't imagine that you celebrating what's going on is, is actually leading to another by the way if anyone thinks that I think you should talk to a therapist, I believe there's there's a that's a mental illness. So you, you can't control the world with your thoughts if you could be much taller and more handsome, and younger. And there'd be a lot that would change. If I could just change the world with my thoughts. I think. That's cool. You guys are just like a great like, young family success story. It's really, really, really great to hear. Is there anything we didn't talk about that you were hoping we would?

Tara Caudill 58:29
Oh, I wanted to let you know that when our second son was born. We named him Scott.

Scott Benner 58:35
Get out of here. Are you serious? You're lying. No,

Tara Caudill 58:38
his name is Nate Gabriel.

Scott Benner 58:40
I knew you were lying. I knew it and I let myself be excited. Anyway. That was mean, Tara

Tara Caudill 58:47
told me to do it. blame him. Jewelry. I said this. I said it as a joke last night and he was like, No, you got to do it. I love it. You tell him

Scott Benner 58:55
I said I told him I said that was hard as you said and I was like she's kidding. And then I'm like What if she's not kidding and I don't act really happy about this.

Tara Caudill 59:13
Jen says hi by the way. Oh

Scott Benner 59:14
yeah. Thanks a lot. That's hilarious. I'm so sorry. I couldn't help it. You did such a good job selling it Are you good liar? Generally? No, not at all. You really leaned into You're very good. Excellent. Oh, I'm smiling so much. That's so funny. Good. Oh, that's fantastic. You guys plan that out? I appreciate that. I do no problem. We're here for us. God I can see it that you guys are just there as my little support system I appreciate. I I can't tell you how amazed and thrilled I am for how well things are going for you guys and I know your your start was rocky but you guys really are are doing a great job. Just remember tell Chad I said kid's going to start growing and he's going to get hormones and things are going to happen and he just has to you guys just have to stay, like just flexible and just move with it meet the need, and you'll be okay. You know, I will definitely pass that on. Yeah, but you got some years before that kid starts popping up and really, I think putting on the bulk wait. I don't think he's gonna think he's gonna be like a little killer when he's seven. So I think you'll be okay for a little while. But that's really something and congratulations on the Baby. Baby. Gabriel. Just, I knew even with like, there's no way you were gonna go to something not traditional, like you guys have like, I mean, those are fairly biblical names that you've chosen, right? Yeah, you weren't gonna go to Scott. I know.

Tara Caudill 1:00:48
Damn it. I do have a cousin named Scott.

Scott Benner 1:00:52
One little bit I should have just let it be. Care about your cousin at all? What do you think of that? diabetes, then tell him I really like that.

Tara Caudill 1:01:06
He doesn't, but my mom is the middle child of three. And she has an older sister and a younger brother. And neither one of them have ever developed it. She's the only one on my side of the family that we have ever found that has it?

Scott Benner 1:01:19
I know. We're never going to know the answer to this empirically on the podcast, but and I don't wish this on you. But I wonder if it's gonna skip generations in your family? Like, I wonder if you have no idea. Yeah, like, I wonder if you'll be the grandmother of a type one one day or something like that. Not that I hope that happens. I'm just I, you know, sometimes it's you wish you had more time on the planet. So you could step back and see how things really, you know what I mean? How they transpire? I feel like that, but maybe other people don't.

Tara Caudill 1:01:49
Remember, I remember Chad told me when they were in the diabetes class in the hospital. Like the very first thing he told Chad was this is not your fault. You did not, you know, pump him full of sugar and kill his pancreas. They were like this, chances are this was going to happen. We just unfortunately didn't know. And another thing they told him was at that time, at least, I don't know, with all the research that's been coming out that in the past couple of years, that they believed that for a person to be able to develop Type One is that the gene had to come from both parents.

Scott Benner 1:02:28
Really, but that that's the case.

Tara Caudill 1:02:32
That's what are understood at that time. Anyway, when he was first diagnosed, that's what our understanding of it was. So before I heard that I was I was still at Fort Jackson. And then when we found out and I had, like, my, I had my breakdown moment, I thought that I gave it to him. And I was I was devastated. I was like, you know, of course hindsight, there's nothing that I could have done anyway, or that we could have done. Like, once the dial started being turned, I mean, he was developing it. But at that moment, I was like, Oh, my God, like, what did I do? Well, they thankfully didn't stay like in that in that dark place for very long and was able to be picked back up by like our friends and family and whatnot.

Scott Benner 1:03:17
Yeah, that just makes me super sad because you were disconnected by distance. Like, I mean, I get that you would feel that way but didn't feel that way and not be able to see him or hold him or talk to him or anything. Like had to add to the despair, I would imagine.

Tara Caudill 1:03:32
Yeah, it was not fun.

Scott Benner 1:03:36
Wow. Oh, you guys, your story's terrific. I appreciate you fighting through the technical stuff. And I actually enjoyed the birds. You're the you're now the third episode with birds in the background. I have to tell you, I find it relaxing. So nice. There they are. I can't wait to tell Jenny about this.

Tara Caudill 1:03:58
Please like message me when you talk to her?

Scott Benner 1:04:00
Yeah, I'm gonna tell her that you named your baby after No. No, do it. That way she'd be so happy if somebody did that. It would break her heart if I told her no. Oh, yeah. Okay, don't but I can't wait to tell her the rest of this. And I genuinely hope that this other Jenny Smith comes on the podcast at some point. Yeah, I really know I want that very badly. All the sudden that's the most important thing in my life. Give them both on at the same time. Well, I seriously so look, this is not a like a flex, it would be a weird flex if it was but I could send an email and find Jenny Smith and get her on the podcast but I don't want to do that. Like I want to see like I want to wait like this go up months from now and like sometime in 2022 Like I just get this email and it's like Hi, I'm Jenny Smith. I'm gonna be like yes, but I feel like like we like one some long game so All right. Well, I will let you go. I'm assuming you have a home to build and and a life to put together there in Texas and I want to wish you a lot of luck. Seriously,

Tara Caudill 1:04:59
I appreciate you taking the time for all this Scott I know that you got a lot going on and I know this is kind of like your gig but I I really do appreciate being able to share share my side of it since Chad got to share his

Scott Benner 1:05:14
Yeah, no I thought it was important I remember back when he was talking thinking that I would want to hear from what it was like to be on the opposite side of that phone call. So yeah, I'm thrilled you did it via Don't thank me. Like, you know, people like you don't come on the there's no podcast, so I really appreciate it. I hope you have a great day.

Tara Caudill 1:05:34
You too, Scott. Thank you.

Scott Benner 1:05:39
A huge thank you to one of today's sponsors, G voc glucagon, find out more about Chivo Kaipa pen at G folk glucagon.com Ford slash juicebox. You spell that? G VOKEGL. You see ag o n.com. Forward slash juicebox. And I'd like to of course, thank Tara for coming on the show and giving us her side of that diagnosis story. Thanks so much for listening. I'll be back soon with another episode of bugling with Scott with his little mouth bugle. That would not be a very good podcast.

If you're enjoying the Juicebox Podcast, please share it with someone who you think might also enjoy it. And don't forget to subscribe and follow in your podcast app. Thanks so much for listening today. I'll be back very soon with another episode of The Juicebox Podcast.


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