#990 Accidentally Amazing

Both of Aimee's daughters have type 1 diabetes and are neurodivergent. Paw Patrol!

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 990 of the Juicebox Podcast.

On today's show, I'll be speaking with Amy. She is the mother of two amazing young girls who have type one diabetes. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. If you'd like to save 40% off of jogger sheets, towels and all kinds of comfortable things, go to cozy earth.com and use the offer code juicebox at checkout to save 40% Are you looking for a Dexcom go to dexcom.com forward slash juice box use my link check it out. And don't forget the 1,000th episode of The Juicebox Podcast is coming up very soon. And we'll be marking that special day with a rerelease of a remastered diabetes Pro Tip series, completely remastered for audio and released at episode 1000. Don't miss the juice box series that started them all the diabetes Pro Tip series completely remastered and coming soon at episode 1000. If you're like me, you may be concerned that you're not getting the vitamins that you want every day. That's why I drink ag one. Every morning I get up I take one scoop of ag one, put it in with some water cold water, shake it up and drink it down. That's how I get my day started. You could to drink ag one.com forward slash juice box. Use that link to get five free travel packs and a year supply of vitamin D with your first order. Drink a G one.com forward slash juice box. today's podcast is also sponsored by touched by type one. This is a wonderful organization helping people living with type one diabetes. And all they want is for you to learn more about them go to touched by type one.org or find them on Facebook and Instagram. Honestly, I don't know why I said or do all three Facebook, Instagram and touched by type one.org they're genuinely doing good things for people with type one diabetes.

Aimee 2:29
My name is Amy. I am mother to Zoey and Riley. They were diagnosed with diabetes in 2021. Type one. And yeah, we are huge listeners of Juicebox Podcast and it's helped us a bunch so we thought maybe we could connect and share some of what we've learned a little bit about our story. Thank you so much for having us.

Scott Benner 2:55
pleased that you're here. Can you do me a favor? Yeah, give me one second. It's gonna be noisy for a second. I'll be right back. Sure. I promise noisy there that was my son was applying for a job. And he used my desk. So we moved everything off of my desk, including my whiteboard that I use while people are telling me their children's names and things like that. And I just had to bring it back and wipe it off and Okay.

Aimee 3:35
He did have a cheat sheet two,

Scott Benner 3:36
he got the job by the way. Oh, yeah, it's exciting. Except it's he's gonna have to move to take it. So

Aimee 3:43
remind me what field teason he has a

Scott Benner 3:47
bachelor's degree in quantitative economics with a minor in mathematics that leans in statistics direction, but he got tired.

Aimee 3:55
My brain just like zoned out what you were saying? Yeah.

Scott Benner 3:59
But here's the thing. He doesn't want to really work in an office too much. So perfect. Perfect job. So looks like he's gonna take a job doing some stuff. He's trying to get into pro sports and do data analysis in pro sports. So it looks like Oh, getting getting in that direction. Wow. Yeah. Wow. Amy.

Aimee 4:19
How old I mean, particular sport. Baseball. I know. I'm interviewing you now.

Scott Benner 4:24
No, it's fine. Baseball if someone's weren't listening right now and they're the lead data analysis person for like, you know, I don't know the Rockies for the Phillies or something like that. They should. Or any of them he'd go anywhere. He's gotten it's probably the one

Aimee 4:40
sport we don't watch in our house. He's gotten I was hoping you'd say football.

Scott Benner 4:45
Do you know someone who works in professional football?

Aimee 4:47
I don't. I was thinking the other way around. Like when he gets in. He can be my connection.

Scott Benner 4:54
Yeah, I don't think that's gonna work out UBC Get maybe you wouldn't be surprised. But the people who listen to this podcasts have been incredibly helpful. Lining him up with just conversations to have with people trying to meet people, stuff like that they've been really, really wonderful. He's had a number of really great phone conversations in industries where I don't even know if he was particularly interested. And it gives you an insight into who's listening to the podcast. So yeah, he had, I think I can just say it like roundabout, but he had a phone call with someone from the Secret Service, to see if he would be interested in that. He's had a couple of other companies that I don't think he would have had a connection to, if like, lovely people from the podcast wouldn't have reached out and said, hey, you know, I know that the hiring manager here or if you, you know, I don't think I could get him a job. But here's the person if you spoke to could really help him understand how to apply his degree better. And what's amazing, lovely woman named Michelle helped him completely revamp his his resume, which was a big help. Because he put it together and more of a hip way. Even in the house for like, I don't think I do that. If I was, you know, applying all these jobs, I'm never hearing back. I'm overqualified. For some of them. Like it's your resume. And he's like it's not. And then Michelle came along and took his resume, like literally for free on her own time, and revamped it, contacted and spoke with him, told him how to fix it. And he started getting like phone calls. Right. As soon as she did that,

Aimee 6:31
I swear that writing resume is like putting it together. It's like an art form. Because there's so many intricacies and like things to it that, you know, could be interpreted so many different ways by employers too much of this too little that can just they won't even take a second look at it. So it's it's really, it's interesting. Yeah,

Scott Benner 6:48
even just the format of it, I guess maybe they scan them and computers look at them first. So they sort of have to fit a format for the computer to be like, this one's viable. So anyway, yeah. Anyway, that's not we're not here to learn how to get a job. So you know, let's go meet somebody.

Aimee 7:05
I'm sure that he's not going to be the first that I'm sure people in the group help each other out so much. I'm sure he's not the first to hope to be helped out. Like, in that

Scott Benner 7:13
sense. Yeah. Yeah, we did a thing the other night, all this together online, I can probably just say this a lot better. The internet, like certain companies don't like it when you give things away, especially medical supplies. But oh, yes,

Aimee 7:29
I did see that. Yeah,

Scott Benner 7:31
I just I was in a very festive mood the other night, and I had a lot of medical supplies that we didn't need anymore. So my intention was to go online, find somebody who could really benefit from them and give them to them. But then the people who were like, Hey, you don't usually do this, but I have 40 of these or 10 of these or whatever. And I basically just set up a swap meet for a forum for about an hour or two. And we must have covered like, 20 families with stuff.

Aimee 8:01
I didn't realize it was that many. That's awesome.

Scott Benner 8:03
I sent my stuff. I split my stuff up between three different families. Wow, there's a family with a small kid now who's gonna have an insulin pump for like, let me do the math. Honestly, might be able to use an insulin pump for like six months for free, because there's somebody I hooked them up with those. Anyway, it made me sad because I thought there's so many people in this group. We could be doing this all the time, but it opens you up to scammers and like, yeah, it's, you know, anyway, it's a thing I have to avoid. But it was nice.

Aimee 8:35
Yeah. There's another group that I'm in as like a, you know, a backup group to the jukebox. Maybe they did something similar recently. But they ended up having a post like we can't do this anymore sort of thing because somebody did end up getting scammed out of like, $250. Yeah, and it was just so sad because it's literally the person who needs it the most the person who can't afford to be scammed is the one who gets scammed. Well, I told everybody so heartbreaking

Scott Benner 8:59
over and over again, if anyone asks you for money, don't give it to him and ask and tell me right away, you know, so. But that was my full time job, I probably could sit there and run it like a swap meeting and let people help each other. It's the it's the scope, the group is so big, that you there's always someone there to help. You know what I mean? Yeah. Anyway,

Aimee 9:18
I mean, I know you've got a lot on your plate. But you know, as as the group continues to grow and stuff, maybe down the line, you could set it up as because I know like when all this stuff started happening over in Ukraine, there were a lot of organizations, nonprofits that were able to kind of gather the supplies from everybody themselves. And then they distributed from there to make sure that nobody was getting scammed, and that everything was getting where it needed to go. So maybe, you know, not anytime soon, maybe down the line, you can do something where everybody just kind of donates to you in one place. And then you have volunteers from within the group that you trust to kind of disseminate the supplies where they need to go.

Scott Benner 9:55
You don't know how old I am. Amy, I know that when you say that, you don't know how

Aimee 10:00
No, I do because I have so many ideas and so many helpful and thoughtful intentions like that. But I don't have the time, or the mental capacity at this moment in my life to do them. Yeah. So I completely relate to just because it's a great idea doesn't mean it's always possible right away, but maybe with the right people, you can, something you can explore. It's a

Scott Benner 10:19
money thing, honestly, right? Because if there was enough money, you still have to ship everything. Yeah, you can hire somebody, you could hire a person who could do it. And you could, you know, you could afford the shipping because that's the other thing. You can't say to somebody, like, I ship the stuff out to three families yesterday, on my dime. And I think it cost me like, $65 to ship everything. So like, Yeah, you get involved in that. And then, but it's, it's funny, we were just talking about this today and on Facebook people, I left a curse in a in an episode by mistake. So somebody's like, Hey, you left the F word here, if you wanted to take it out, then starts a conversation where inevitably people are like, I would pay if you just put up episodes where you left the cursing. And I'm like, okay, but here's the thing. Like, I can't, you know, like, I would like, first of all, I don't curse on the podcast, and I bleep out the cursing, because it limits the some countries that I can put the show in, if you hearse and it limits people. And you might not know that as a person who, you know, if you're a person who doesn't care about dropping an F bomb once in a while, but there are people who send me notes are like, Listen, you said F and didn't bleep it out. I'm not listening to the podcast anymore. And they're not kidding, you know what I mean? So like, I don't want to eliminate those people. If I go to a pay model and say, Look, there's episodes over here that say don't have ads on them, and there's cursing and etc, the advertisers aren't going to be thrilled to know that I'm splitting up the listenership and take people away that might hear their ads. And so there's just all these. So the idea is, and if you just charged everyone, and don't think this hasn't like crossed my mind, because it has like this, this year is a great example. 2022 you're recording like right before Christmas with me? The podcast has 5 million downloads this year. So you don't need to be a mathematician to know that if I charged 50 cents for a download, I would have made two and a half million dollars this year. And you think and you think oh my god do that. Except that's not really true. Because if I charged 50 cents a download, I wouldn't have 5 million downloads this year. Exactly. you'd stop people from getting to the information or from the comfort or even just the entertainment of it. And there are people who would look and go, you know, $4 a month seems reasonable, but I'm not paying it. And now, there's some kids sitting somewhere where for $4 times 12 for $48 a year that kids a one sees a point and a half higher than it would need to be if their mom listened to the protest series, for example. And I can't wrap my head around doing that. So here we go. So there's no, there's no bigger ideas getting built. Because I think the big idea is reaching as many people as you can and helping them.

Aimee 13:04
Yeah, absolutely. Anyway. Absolutely.

Scott Benner 13:07
I mean, 12 minutes later, how old are you?

Aimee 13:11
Whatever I was born in 87, don't whatever that makes sense that correct. I'm, I'm that person. I'm the person who has to take out the calculator every time someone asked me, because I'm just my brain doesn't do that. It doesn't retain my age. I think I'm 30 530-536-3587

Scott Benner 13:29
You were born Junior two years before I graduated from high school. So you're 35 Oh my God. You're 35 Give me your kids names again.

Aimee 13:38
Riley. And so we Riley is five she just turned five. And so we just turned three.

Scott Benner 13:45
And we don't care about your husband right now. Right?

Aimee 13:49
You know, he's always telling me everybody's gonna think you're a single parent because you never talked about me on social media. That's my husband's voice right there that I just did. So I have to mention him. Because otherwise I'll I'll hear about it later. So yes, my husband's name is Chris.

Scott Benner 14:06
Was that you just doing a Caucasian dialect by the way?

Aimee 14:09
Yes, it is. Can you tell I was gonna ask you. Why sound Hispanic? Because I don't think I sound Hispanic people tell me I do. And then obviously you just heard my voice change. And that's my, even though he's not Caucasian. He's also Hispanic. So I don't know why I did that voice you

Scott Benner 14:24
did, though. You made him like a white guy in your story. You're like, you did I know. You

Aimee 14:31
think what it was is that's more my stern voice and I associate sternness with old white men. Oh, that's why it went that way.

Scott Benner 14:41
Do you sound Hispanic? Yeah. Yeah. At the ends of your words a little and when you speed up when you speak a little bit, but I've met you I've met you and Chris in person. Yes, Chris paths is easy. Yeah, yeah. You not so much. Like if you were like, if you were like I'm Irish. I'd be Like, No you're not. But I think Chris,

Aimee 15:03
Chris has like the lighter here and the lighter guys. He's very, I think my thing is I'm like super white. And then when I have my hair like my funky colors, like if I do pink or green or whatever, then I think I pass a little bit more. Just like for general American, like just white person

Scott Benner 15:20
trying to name your episode general American. No, no.

Aimee 15:26
I think we, I think a couple of months ago in in a an Instagram DM, we we discussed that it should be something like, like, do I live near a nuclear plant? I think was was what you had said. And I said, Oh, that's gonna be the name of the episode call you name it that

Scott Benner 15:40
call you The Simpsons or something? So Riley has type on?

Aimee 15:45
Yes. So Riley has type one. So we also type one.

Scott Benner 15:50
When was diagnosed first,

Aimee 15:53
Riley was diagnosed first. So she started having symptoms, which I didn't really think of as symptoms of weirdly enough, because my sister is also a type one diabetic since we were children. And it just didn't really occur to me, it occurred to me sister, she asked me, she said, Well, you know, I told her, Ryan's been drinking a ton of water. Recently. Actually, the way that it happened was I had a friend with a daughter Riley's age, and she was drinking a bunch of water. And she was feeling like lethargic, and all these things. And I said, Oh, that that sounds kind of like diabetes, let me put you in touch with my sister and kind of testing you can have done because I wasn't familiar at the time with things like trial net, but I knew that they existed. So I said, let me just put you in touch with my sister. And then through that conversation, I started noticing, well, you know what, Ryan's actually been drinking a ton of water recently, too. But I didn't really notice anything else that really, you know, was like, oh, diabetes, diabetes. So I kind of just put on the backburner. And then she sort of phased out of it for a little bit. So that was like October 2020. And then, April 2021, things started to kind of ramp up again, I started noticing that she was having a lot of bruising, like really easy bruising. And she was sleeping a lot, she would have like massive ravenous appetite. And then the next day, it would be like she didn't even want to look at food. So that's something was going on. But my mind, I was thinking more like a urinary tract infection or something because she was also saying Ouch, whenever she was wetting her diaper, okay. And then she started wetting the bed a lot overnight. Like I'm talking like a human sized puddle in the middle of the bed, just like the whole mattress wet. And so at that point, I took her into the pediatrician. The funny part of the story is that I took her in for a sick visit. And her sister was due for a wealth a wellness check, like her yearly exam. So I took them both in the same day at the same time. And they check them both over, they told me come back on Monday with Riley so that we can do a urine collection. But nothing was mentioned about tea Wendy or anything, they said more they were thinking like something like anemia probably UTI something along those lines. So we went home, I brought her back on the Monday, so April 5, and I was supposed to collect the urine sample at home. So I started loading her up with apple juice. We get to the pediatrician, they take some blood work, and immediately come back in the room and they're like, hey, so you might need to sit down. Don't freak out. I need you to have your husband pack a bag. And if you can't drive come and get you but you guys need to go straight to the hospital. Because Riley is diabetic. And I have a very strong feeling that she's about to be in ketoacidosis. And I was like, Oh, I know those words because of my sister. And I just My reaction was I started laughing because I was like, There's no way this is happening. And it just That's my reaction. I was just giggling nervous giggle. We went to the hospital. And sure enough, she she was diagnosed there and they put her on some fluids. Thankfully, with the blood of gases and all the stuff that they check, they figured out she wasn't in DKA. But she was like right at the edge. So I believe her a onesie in the ER was like 13.8 13.7 or 13.8. Okay, so at that point, then we started realizing, oh, some of this stuff now makes a lot of sense because she was having like random napping when she hadn't been napping. You know, we had eliminated that from her schedule for months. And just all of these things kind of lining up. She had been having blurry vision, which we didn't think was we didn't put that together because Riley is also autistic. And so she does a lot of what we call stimming which is just like sort of like, I guess like these tics and different things that give her like sensory input. So recently she had been like taking her fingers and like squinting her eyes and opening them like really wide and just making different shapes and we thought that was just her I'm having a new stim. And after the diagnosis, we realize, Oh, she's now that her sugars are in control stop doing that. We really think that that was now in retrospect her, like having blurry vision from the high blood sugars and just trying to actually open her eyes more so she could see better. And that was like a real interesting thing to look back on and realize because it was like right there in front of our face, but we didn't. We just didn't put it together. You know,

Scott Benner 20:28
stemming repeated repetitive behaviors or noise is often associated with autism. Stemming describes self the accumulation stimulatory. I don't know why smart people can't just talk like everybody, but okay. Stimming describes self stimulatory behaviors that involve repetitive movements or sound, commonly refers to behaviors displayed by people with autism, such as flapping, rocking back and forth. You don't have to be autistic to stem for example, tapping your foot when you're nervous could be an example of it. It does look different, though, when it's a sign of autism. For instance, behaviors like finger flicking and twirling can become excessive and or obtrusive, and someone who has autism.

After you're done listening today, please head over to touched by type one.org. Check out all the good things that they're doing it touched by type one, there's the big conference coming up that I'll be speaking at that in a couple of weeks actually getting close now, I think it's sold out, but you can check touch by type one.org. And by sold out, the Tickets are free, I just maybe the tickets are gone, you can find out what else they got the big dance recital coming up all kinds of stuff, touched by type one.org. This is a great organization helping people living with type one diabetes, learn more about them, and follow them on Facebook and Instagram. There are links to touch by type one in the show notes of the podcast player you're listening in now. And at juicebox podcast.com. You'll also find links to all kinds of other things there. Like my next sponsor, ag one, I began drinking ag one because I was concerned about my gut health and my vitamin intake. And now I use ag one every day. It's a foundational nutritional supplement that delivers comprehensive nutrition to support your whole body's health. I heard about ag one on a podcast, just like you're hearing about it now. And I clicked on a link and you can use mine. Drink ag one.com forward slash juice box. It took me a little bit of time to move ag one into my morning ritual. But after a few days, it just became a habit. Get up, get your ass go downstairs, grab the jug of water, grab my ag one shake, shake, shake. Next thing you know, I'm doing something good for my body. And what keeps me doing it? Well, it's how I feel. I just feel better drinking ag one. Drink ag one.com forward slash juice box links in the show notes links at juicebox podcast.com. If you can't remember, drink, ag one.com forward slash juice box. When you use my link, you're also going to receive five free travel packs and a year supply of vitamin D with your first order. So if you want to take ownership of your health, it starts with a G one. Try ag one right now with my link, drink ag one.com forward slash juice box. When you click on my links, you're supporting the podcast and helping to keep it free and plentiful.

Unknown Speaker 23:49
So

Aimee 23:49
yeah, so we kind of wrote it off as just, you know, it's probably a stem, it's, you know, we'll take her to the doctor, we'll get her checked out. But we don't think that all of these things were connected. And obviously, in hindsight, we can now see things like irritability was another thing we wrote off because obviously was was not obviously but with autism. There are a lot of triggers and triggers lead to meltdowns and different behaviors. And at that point in time she was in therapies and things like that. So we were working on a lot of those things. But she was also very expressive. And had we had noticed that she was super irritable more than usual. And so we just kind of wrote it off as Oh, she's she's in the therapy. She's working on things. It's gonna get harder for her before it gets easier. She's working through stuff. So we kind of just put it on the backburner. Didn't think about it twice. And definitely, with her being in the hospital, more so than the actual diabetes diagnosis, what worried us and what scared us and what really shook us was this idea of how is she going to deal with this as an autistic person because is a lot of the autism centers around, like I said, triggers which can be physical triggers things like, you know, the poking of the fingers and the shots, we thought that was just going to be impossible for her because, you know, sometimes she just gets like completely naked around the house because she can't stand the feeling of the clothes on her skin. So now imagine thinking about her future of constantly having to be touched and prick them prodded. And then when she gets an insulin pump having to wear that all the time. And so we were were more nervous and more, just, like really scared of how all that was going to affect her more so than the actual management of the diabetes. So

Scott Benner 25:41
how well, okay, so that's a lot. Let everybody soak that up for a second. Yeah. How old was Riley when you realize she had autism.

Aimee 25:49
So she was probably about, I think she was like six months old. When we started noticing that she wasn't meeting these standard milestones that they give you from the pediatrician, the CDC lays out, we knew that she was physically delayed because she had plagiocephaly, which is basically when the head kind of gets like slightly misshapen from tightness in the muscles. And that typically occurs when an infant can't lift, like they don't do enough. They don't spend enough time on their stomach. Yeah, or they spend enough time on their stomach, but they just don't have the strength. So they end up having to do physical therapy, which is what she ended up having to do. She had to wear a little baby helmet, which was adorable. But she had to wear this little helmet. And she had to do physical therapy for like nine months, in order to properly learn how to lift her head and then eventually crawl and then eventually sit. And then once she was able to be sitting, then she kind of the next couple of milestones she made up on her own and she was fine. Like walking, running, things like that. But But yeah, so I started, those were the first signs. And then speech delay was the next thing that was really big for her. She she didn't, she would babble a lot, but she couldn't really, she really, she had to mode she would either babble a ton and repetitively. So not really actually communicating. Or she would completely shut down and just not speak at all, which led to a lot of like frustration and tantrums and things like that.

Scott Benner 27:19
I have a question going back to the, to the wearing the wearing a helmet to stop the flat spot, which is called plagiocephaly. Yeah, all right. Not bad. If you don't address that, if you don't use the helmet. Yeah, what do they tell you is going to happen.

Aimee 27:36
So the head will stay misshapen. And those bones which are really soft, and kind of just migrating to, you know, because when a kid is born, the the cranial bones are like really soft, and they are not quite fused together so that the infant can pass through the vaginal canal and all that stuff if you're burning. So once they start fusing, they're gonna fuse into whatever shape so if a kid spends a lot of time, you know, in a in a swing, for example, or you know, like their highchair, whatever, they can develop these flat spots, and then their bones will actually fuse like in that shape. And that can lead or cause pressure on the brain in areas where there shouldn't be excessive pressure, which can lead to like problems with vision, it can lead with problems with the sinuses. For Riley, she had like her cheekbones actually were like, too high up, because her face wasn't like it wouldn't expand the right way because of the plagiocephaly. So, yeah, we were the little helmet. And then they they did, it's called a doc band, if you want to look it up, they do like a before and after. And they show you the different shape of you know, the facial features and everything. And it was insane to me, like her head is still a little bit you can tell it's a little bit differently shaped. Because for her, the first round of the helmet didn't work as well. So she had to wear like two different rounds. And by the second round, a lot of her bones had already begun to fuse. So you can still tell that there's like that difference in her head shapes. Yeah, but even just from the before and after pictures, you can see what a difference it made, like her whole facial features, like they changed because of her cheekbones being able to drop down and set where they where they shouldn't be pretty interesting. It's

Scott Benner 29:24
amazing, actually. Yeah. So for you. And I mean, I'm looking at the numbers here. So you're in like your early 30s. And you have a baby and then the baby, you know, started showing the signs. What's what's the, the impact on you personally in your relationship at that point,

Aimee 29:44
honestly, I mean, so a lot of how we reacted to it goes back to the fact that I myself have a lot of health issues and we weren't even able, we weren't sure if we will be able to have like our own kids. So when We started noticing the signs, you know, obviously, there's a part of you that's just kind of like, oh, you know, I don't, I would never choose to have medical complications for my kid, or differences because we kind of come to, we've come to see autism is just like we're differently wired versus it being like a defect. So it does present challenges. But a lot of those challenges come from the fact that our society is not designed for people who are differently wired, not so much that they've been differently wired causes an issue in and of itself. I don't know if that makes sense of,

Scott Benner 30:36
so what are some of your health issues.

Aimee 30:40
So I have lupus, I have systemic lupus. So that's like, it involves all the systems of the body, which is an autoimmune disorder. And then I also have Hashimotos thyroiditis, and endometriosis, which is a gynecological disease. And that I don't know if you know anything about that. But basically, it's tissue from inside of the uterus, or tissue similar to that of inside of the uterus ends up in places of the body where it shouldn't be. And then whenever your hormones change throughout the month, that tissue like contracts, and it can basically choke out or cuts like blood supply off and cause scarring and damage to wherever it's attached. So if it's attached on the bladder, or the bowel, different places, it causes a ton of pain. And then it can also affect your your ability to it affects fertility a lot.

Scott Benner 31:34
And Riley has autism and type one. Does she have anything else?

Aimee 31:41
Oh, no, no, she is. Yeah. So far. So good. She'll be getting as she ages, she'll get like the testing done for lupus because? And for endometriosis, because there is an increased chance for both of those things since I do have them. But that will be something that usually that manifests itself like in the teen years, late teens, early 20s kind of thing.

Scott Benner 32:02
How about Zoey, does she have anything? We want to talk me? She has type one, obviously. But is there anything else happening?

Aimee 32:08
Yeah, no, she is she is going to be evaluated pretty soon for sensory processing disorder, which is it falls like within the realm of autism and like what they call the spectrum. There's a lot of back and forth within like the community for autism about like, like preferred language and, you know, like how these sub conditions are like described and things like that. So I think you had an episode that aired recently with another parent with an autistic child. And she kind of touched on a lot of those things like how even within the community, we're not really sure how we're what is appropriate, or the appropriate way to talk about it or explain it. Yeah. But yeah, as of right now, it's considered like a subset of autism. But basically, it manifests itself instead of like, affecting cognitive abilities, it manifests itself more physically. So do we need like a lot of stimulation, or having too much stimulation will send her like into like a tantrum or be really upsetting for her and difficult to deal with? So lots of noises or physical input can be really overwhelming for them both.

Scott Benner 33:14
Is it frustrating? That, I don't mean that the community doesn't. can't settle on, like, agree on things, because you see it in other communities, too, right? If there are people tell you like, I wish it wasn't called type one and type two diabetes and stuff like that, like, everybody has their thing? I don't mean that. But I mean, is it frustrating that it's not like you go to the doctor and doctors, oh, you have the flu? And this is how we treat the flu? Is that part hard? Yeah.

Aimee 33:43
It is it because so much of it is so subjective. And because of the nature of autism specifically being like, it's technically a neurological quote unquote, disorder. That means that it's hard to separate, what would be considered the disorder from what could just be considered quirks that are just a personality, like personality quirks? So and especially at their ages, where they're just developing their personalities, it's really difficult to be like, is this toddler behavior? Or is this something more than I need to be a little bit more flexible on because she has a need that's not being met with autism and stuff? How old was so it is kind of I wish it was just like really straightforward testing kind of thing. Just be like, Okay, this is it's like any disease like that has any subjectivity to it, it's you, you get diagnosed and then you take a medication, and there's always some give or take, and you have to be fluid about certain things, but for the most part, a lot of these things are very straightforward. And with mental health and cognitive and neurological things, it's not quite that way.

Scott Benner 34:51
Yeah, it just it to me it feels like there's things going on in your life constantly. Mostly, you're probably wrong about them. You're trying to figure out what they are, you know, but but it least you can kind of say put it in a box and, and call it something so that you know what to do or how to deal or whatever. But it just I don't know, it would be it would sounds fresh frustrating to me.

Aimee 35:12
I'm going through that. Now, I don't know if you remember, but I going through the process of being diagnosed myself with ladder. Yeah, sir, or type two, we're not sure at this point, which is very much to the point of what you're saying is I just kind of want it to be defined already. So I know how I can approach it because I, I am the type of person that the enemy I know is is easier to deal with than the unknown. Even if it's bad news, and they tell me you're you're gonna have to take insulin, the rest of your life, whatever, I'd rather know that than be in like this limbo, that it seems like I'm going to be stuck in for a while because it's such a slow onset. And there's no real way for them. They're like, well, you don't have the characteristics for type two. But you also don't have antibodies yet for type one. So we're not sure if it's Latta or if it's this or, you know, it, there's so much unknown there that I'm just kind of, like really frustrated with the whole process.

Scott Benner 36:09
I think I understand. Okay, so how old is the only when she's diagnosed? Type one.

Aimee 36:14
So she is 17 months old. Okay, well,

Scott Benner 36:18
overachiever there on that one. And then, okay, and the other diagnosis stuff is happening now. And she's three. And let's just to round out the story. Before we move forward. Your sister has type one as well.

Aimee 36:33
Well, let me let me finish on Zoe's Go ahead. Yeah. Yeah. Because they're, the unique thing about them is they were diagnosed 14 days apart. So Riley was diagnosed on April 5. I told you the whole story. We ended up in the hospital, we were there. We got our learning, we went home. So we're back at home like around the 10th. I think it was, and we're getting Riley into her routine. She's doing her fingerprints every morning and she's getting used to everything. And 17 month old Zoey comes trotting in one day, and she's just like, sticks her finger out. And she's feeling left out. And she's feeling sort of like, I want to know what's going on my sister, I'm concerned about this do me and she sticks her finger out. And she asked to have her blood, her blood checked before meal. And this is breakfast. So they hadn't eaten anything yet. And I prick her finger. And I'm all excited because she didn't cry and all this stuff. And it took me a second to actually realize what was happening. I looked down at the meter, and she's over 300 Oh, my God. And I'm like that was my sister was with us because she and my mom came to stay with those right after Riley's diagnosis to kind of give a lending hand and help us adjust. Yeah. And so my sister just kind of like her, she starts laughing because she's like, there's no way there's just no way. There's no way that you have hit this jackpot of both of your kids being diabetic. After everything that's been happening. There's just no way. And so I called a pediatrician, and they told me to come in, in the afternoon or that evening. So we take her in. And when we take her in her blood sugar is back to normal. She's like in the 80s. And so the lady is kind of giving me a hard time because this is not our normal doctor. This is the after hours doctor. And so she's given me a hard time about this, like, oh, well, ad is perfectly normal. She probably just had like her finger wasn't clean. I was like, I clean her finger with alcohol. My other daughter is diabetic. Like I know, we're new to this, but we're not that new to this that, you know, we would make a mistake that would give us that number and then we freak out. Yeah. So I'm trying to kind of like advocate and I'm like, can you please just do like a pee test? There's, there's it's so non invasive, just do the pee test. So she does the thing. And of course it comes back Oh plus like three or something like that for ketones, and she's got spillage of glucose in the urine. So then at that point, she's like, okay, yeah, you guys need to go to the hospital. And she's like, but I think you can wait till the morning so we put in the call to our Riley's endocrinologist at this point. And we're like, Hey, we're gonna be there tomorrow morning. And, and just have everything ready. So they take us in and I believe Zoe's a one C was seven 7.6, I believe is what it was when they did it. So we caught it like, like right there early enough. She didn't need to have like insulin right away. But yeah, that's that was the it was sort of interesting, because then like all the people that had just seen as a couple of weeks back, we're like, Wait, why are you back here? And then we're like explaining. And at the time, she was the youngest that they had had on the ward. 17 months old was the youngest that they had had since they opened up that wing for the hospital. So

Scott Benner 39:44
yeah, they get a plaque or something. They name a wing after you know nothing, nothing good.

Aimee 39:51
No, but she did have the did have us teach the nurses how to dilute the insulin. because prior to us being there, they hadn't use diluted insulin for somebody around Zoe's age. It was mostly like kids like in elementary school level. So they would always just get it compounded, like get it at a pharmacy, but with Zoe's age and her needs changing and stuff. I said, Well, I wanted to be able to mix the insulin and myself so that if we need to adjust the strength for the dilution, I can do it from home, and not have to constantly be running out to the pharmacy whenever we're tweaking her dosages and stuff, right. So they actually had us go down to the clinic, we learned how to do the dilution, and like all the math and all that stuff. And then when we got back upstairs because this was in the the endo clinic is within the hospital, when we got back upstairs, they had us the nurses come by like one at a time and had us teach the nurses so that they could learn, and they could begin mixing it on the floor. because prior to that, they would have to wait for the pharmacy downstairs to mix it for them.

Scott Benner 40:55
That's unreal. So yeah, yeah. Wow. Okay, so I mean, now there's two of them. And you, I mean it, honestly, do you think about going to the mall and coming home, like doing the old like, I gotta go get milk? Chris. I'll be right back. And then you just or I mean, what are you just so focused on handling things that you don't have time to freak out?

Aimee 41:19
Yeah. So I think I've had enough trauma in my life that I kind of am like, I'm a good man in the storm, I guess is the phrase that I've heard, that probably explains it best. Don't panic. Don't freak out when, when something like crazy out of the norm happens. Just because I've got like, I don't know if it's, it's not thick skin. But it's just I have like this. It's like a fight or flight kind of thing. And I just I focus on what needs to be done in the moment. Rather than dwelling on how did I get here? Why did this happen? Not to say those things aren't valid feelings to have. And of course, I've had them before. I can't tell you how many times I've just sat there in the shower and cried. But also,

Scott Benner 42:00
to stand in the show does nothing for me. Maybe that's why you're crying? Are you doing it wrong? You're supposed to have a shower. Kidding. Oh, yeah. I mean, you know, maybe

Aimee 42:10
not, when not when you have lupus, sometimes you have to sit in the shower.

Scott Benner 42:15
Or you see, yes. I can't show you at all. You got too many things going on.

Aimee 42:21
You can joke. I mean, it's that's how I get through it. You gotta laugh about it. And you gotta make jokes, because otherwise, it's just plain sad. How do you man? And that's not me? I don't know like that.

Scott Benner 42:30
Yeah, how do you manage lupus, there's something that you can do to help yourself.

Aimee 42:34
There are it just, it really depends on how progressed it is. And Lupus is a disease that has periods of of activity, and then periods of remission. So like right now, for example, I'm in like a massive lupus flare. And so during the flares, I'll get steroid steroid medication, and that will help calm like the inflammation and reduce the damage that the inflammation is doing to my body, basically, but I can't be on steroids, you know, 24/7, because then that will cause its own issues and its own problems. Yeah, so it's kind of just managing like the flare ups as they happen. And then, you know, the longer you have it course, like I've been told, eventually, at some point in my life, like there'll be lung involvement, there'll be different things like the kidneys is usually one of the big ones, where you start having decreased function and things like that. But there, there are things you can do to kind of just manage each of those symptoms, like separately, there's not really any way to stop it. Unless, I mean, some people get chemo because it's, it's a, it's an autoimmune disease. So basically, if your immune system is so overactive, that you're constantly attacking your own body, then they'll do chemo and that will basically blast your immune system. So now you have higher risk of things like infection and stuff, but your body is no longer has an immune system to activate in order to attack you. So technically, your disease would be in remission at that point. What does that that's reserved for the most of your cases?

Scott Benner 44:01
What's a flare up look like? For you.

Aimee 44:04
So it can vary with this one, it the most basic symptoms of it are like flu like symptoms. So a lot of like, aches, pains, joint and muscle aching, a lot of inflammation, mostly around the joints, all the joints, I'm talking like, like the littlest joint in your pinky finger will, it'll literally just, like swell up. It's also very different, like from person to person. Yeah. And then you get like, there's like skin symptoms. So I'll get like this rash that goes across like the bridge of my nose and my cheeks. It's called the butterfly rash. And that'll just, it's not itchy or anything, but it's just a lot of swelling in the face. And it'd be very red sun sensitivity issues with like maintaining vitamin D levels, because you can't be out in the sun and your body doesn't synthesize the vitamin D as well. So which is very similar with diabetes. They have that issue as well. So it's a lot of things like that digestive issues. It just depends what system of the body is being actively attacked at that point.

Scott Benner 45:04
Okay. Wow. Okay, well, do we just take a break? Should we sing? Like what do we do right now? I mean, is there more stuff we haven't gotten to so far? Well, yeah,

Aimee 45:17
I mean, you want to touch on my sister My sister was, was the first diabetic in the family, the first person that we know with autoimmune, anything autoimmune. And she's, I swear to you, you're gonna want to have her do her whole own episode, because her story is, is incredible. She was diagnosed in 1994. So she's been through tech, like having technology not having technology. She had insurance not having insurance. She was she lived through the era of when we have pre existing conditions on insurance plans is like a Yeah, yeah,

Scott Benner 45:51
I remember basically, I remember being worried about that when Arden was diagnosed, the idea of like, Arden has a preexisting condition, she won't be able to get health insurance. Yeah. And that kind of has morphed in, in how insurance works. But I remember being so scared about that, oh, yeah,

Aimee 46:10
it was such a huge, it was such a huge barrier back. I mean, not with diabetes for me. But with my other conditions, I literally went without treatment for so long, because I was constantly considered, I got I was that person that got caught in the cycle of get a job, have to wait two or three months to get the insurance then have to wait for the preexisting clause to be met the requirement for that. And then by the time that happened, my employer is so sick of me missing work, because I haven't been able to treat the condition because the insurance wouldn't cover it due to the pre existing clause, that now they fire me and I have to go find another job. And the cycle starts all over. And that was literally like my life for 10 or 15 years until everything kind of with the Affordable Care Act and all that stuff, kind of put a damper on put a stop to the pre existing stuff. But yeah, it's it's such a huge thing. And thankfully, and our kids don't have to deal with that now. Because I don't even I wouldn't even know where to begin if if that was still something that we had to contend with.

Scott Benner 47:11
No kidding. I mean, yeah, geez, imagine you couldn't get insurance that your kids wouldn't have insurance. Yep. And then, then you're then you're going to the lake, then you're gone to the middle or

Aimee 47:22
you're still paying for the insurance. You're just not covered for that condition. Which is even worse, because now you're having to pay for the insurance, and supplies and things that are out of pocket. It's still like it. Yeah,

Scott Benner 47:34
yeah. But it won't help you with the thing you actually need. I won't help you. Yeah. See? All right. My God. So your sister, I'm sorry. She's just diagnosed very young as well.

Aimee 47:44
Yeah, she was 11. So I was she's four years older than me. Okay. So yeah, she was like, right in the middle, like starting middle school. And, and witnessing everything that she went through was definitely put us in a place now as parents with two D, Wendy's, where we're doing everything possible to make sure that the kids have everything they need, not just supplies and things like that. But as far as like support and community and just making more decisions involving like the kids mental health, because I saw how much that not having that from her doctors back in the day. It was not mental health was not something that was talked about in 1994. And how much she struggled with it during that period of her life where she was literally like teenager, which is already a difficult time and then just diagnosed and, and she obviously we we were not well off as a family around that time either. So we had a lot of issues with her and the insurance and things like that. And she had to us you really have her on she went through rationing. There was a one point in time where she was taking like her Lantis shot like every two days, because she was just trying to ration it out. She's got a lot of a lot of interesting things that she can share. But she definitely impacted how we think about diabetes in terms of what we want to do, what we don't want to do and things that we want to focus on and what we think is important about management.

Scott Benner 49:11
Well, hold on seriously, your Can I Amy, can I say something? Yes, life is such a mess that it's making me dizzy.

Aimee 49:22
I am amazed that I am so well adjusted, considering everything that's happened and that my kids are so well they just did considering that they have me as

Scott Benner 49:33
your girls or your girls are lovely. And I wonder about please. So it's obvious. So let me let me let me ask you this, when all these things happen in your life, and it becomes obvious that your children are going to have things that they need to do and you know as far as learning and growing and health stuff. There's your life get on the line. mean here. Be careful with a microphone on your hair, by the way, but yeah, there's your time pulling it back. Does your life get smaller in scope? Like, like, when you're first married, you think like, Oh, we're gonna do this, like you have big ideas about like conquering the world kind of stuff, whatever that means to you. And then once it becomes obvious that your needs are going to be daily, and I'm assuming hourly, do you start to like, not? I don't mean like, close yourself off to the world. But you start narrowing your focus, you start thinking like, well, this is my life like this. You don't I mean,

Aimee 50:36
yeah, no, I absolutely, my husband and I drove down to Miami for an appointment over the weekend. And we were literally talking about that exact thing, almost the entire way down. We so for me, I had the benefit, I guess, would be the right term of having been sick myself and having to have adjust my head to adjust my own expectations prior to my kids coming along, and prior to them being diagnosed, so I already had to make huge adjustments as far as what I was what I saw for my life going, you know, into the future. So I kind of already was the head already been tempered down somewhat. I did have you know, I wasn't I went to college, and I was studying photography for a while. And then when I started getting sick, I switched over to pre med interestingly enough, because I started finding all of these doctors that I was interacting with. I found it so interesting. And I watched a ton of Grey's Anatomy. I mean, it definitely influenced it

Scott Benner 51:42
made me think I can be a doctor by the way. I'm gonna slip in sarcoidosis somewhere while we're talking. Whatever.

Aimee 51:51
So that's more of a house a house that is diagnosed. Yeah, right.

Scott Benner 51:55
Every everything they couldn't figure out was was Sark. sarcoidosis.

Aimee 52:01
It's never lupus though. Do you think?

Scott Benner 52:03
Do you think the doc did the writers just got like, they were like, Oh my God, we've been doing this for seven years. I just say sarcoidosis.

Aimee 52:10
Probably. Well, I always thought that was an interesting because so when I went to school, and I switched to pre med, I said, Well look, even if I can't physically work in a hospital, because now my my conditions are progressing. Maybe I can use this in like the way that you know, people work in Hollywood consulting on shows and consulting for, you know, movies and things like that to make sure they have all the medical stuff, right, I would totally love to do that. It's different, and it's fun. And then again, tempering my expectations as things progressed, that flew out the window and and then I just I became a stay at home parent, because it's much cheaper, we would have ended up having to pay more for like daycare, I would have not brought home enough money to cover daycare and still make a profit doing that. So it was just cheaper for us to have me be a stay at home parent. And then I was already in that position when we started discovering that the kids had these needs. So it kind of all just happened that way. But I would be lying if I didn't say that some days, I wake up and I'm just kind of like, I wish that you know, I was still pursuing, you know, photography and chasing this band across the United States and covering their whole tour. And because that's what I used to do as concert photography. I definitely do wake up some days. And I'm like, Oh, I wish that was still happening. But I also feel like my world has gotten bigger in different ways. As you know, we have a huge social media following over on on tick tock and we got on Instagram, we've got that going. We're starting YouTube. And it's something that I never would have seen myself doing back there probably would have made fun of myself, if like me from back then saw me now be like, oh, what you're like a, like an influencer now or something like I would have totally kicked my own butt. But I think that what we're doing definitely fills some of that, if not, in a different way, it fills some of that need and some of that desire that I had before of just like wanting to be important and do something huge with my life, you know, because we are we're not a doctor, and I'm not, you know, fixing anybody out there. But just being able to talk to another parent or even another T one D that's like, hey, you know, I've had this for years, and I've never been able to get over my fear of you know, poking my finger and seeing your kids doing it, you know, with each other and supporting each other has made me reach out and be a part of this community now that I'm finding for the first time. That's so like, huge. And I don't want to tell you, I mean, you live it every day. Having an impact on other people's lives is something that we didn't plan for. But it's not something that everybody can do. And we have to realize that we're we're kind of lucky in the sense that we get to do that.

Scott Benner 54:54
Yeah, I don't know if I feel lucky, but I understand. Yeah, I know.

Aimee 54:58
I think well, so that's where Are our social media name accidentally amazing comes from that it was this thought that we never would choose this even going back if we had three wishes, and we could go back and change the kids not being diabetic, of course we would in a heartbeat. But it's actually turned out to be accidentally amazing in ways that we never would have expected, we've been able to find good things about it to focus on, and more importantly, to help the kids focus on because whatever we model for them in terms of perspective, about their life and their conditions, and their challenges, is what they're gonna build their own perspective about themselves and about what they go through. They're going to build on that. So we have to do our best to set a good foundation for that. Yeah,

Scott Benner 55:47
yeah. I mean, I take your point. And I understand and I feel lucky that what I do during the day helps people a lot. Honestly, I don't feel lucky that you know, that auto immune stuff, found my family, but as long as it did, you know, dot dot dot, then then the rest of it does feel lucky. I was trying to be funny. And instead, I said something that you were like, oh, no, my bed. Okay? Is it intrusive? So these these platforms, they demand video. And what people might not know about them is you could build a massive following on Instagram, for example. And, and it could go away in a split second, like the algorithm could stop pushing people to your content. Or you could just get into a situation where you can't make something for a week or two. And people are just like, well, I'll go find someone else. And then you're gone. Once your momentum is gone, the whole thing's over. Yeah, the the podcasting has that similar issue. And I would be lying to you, if I didn't tell you that I worry about it. Like constantly. It's almost like feeling like you opened a donut shop. And then someone opened one up two blocks away, and you're like, No, no, no, no, no. Like, even if they go check out the donuts, they might never come back. Even if those aren't any better. Like, whatever. It's just, it's, it's that feeling of like, you've built a thing. And it feels like it's built on, I don't know, just straw and mud, you know? So like, do you feel a pressure to be constantly making stuff?

Aimee 57:24
I think I do, mostly because, you know, we're not really like monetizing, or anything off of it, we have a couple of like, partnerships, like within the diabetes space, which mostly is stuff that we do, because it helps us cover our own costs, where supplies like the extra stuff insurance doesn't cover. So by doing like content for them, you know, we'll get some patches here and there. And, and that goes a long way, especially when you have the two diabetics plus now myself, I wear Dexcom, as well. So it's a lot of stuff. But I don't feel pressure in the sense that I have to make the kids do it. It's more like they do it when they're up for it. And when they want to. And thankfully, it's something that they do, I feel like it's made their management a little bit easier. Because when a site change comes up, instead of it being like, Oh, I'm dreading the site change, what they're focusing on is, Oh, are we going to make a video about it? Because we want to, they get excited about making the videos, okay, so it's definitely helped us with the management. And we don't ever, it's, it's always offered, it's never something that we hold them to. So I do feel pressure on myself, when ever they're in, you know, like a phase where oh, maybe they don't want to make as many videos or maybe I've just have a lot of other stuff going on, then I do feel like, okay, I'm not. And it's more like I'm letting people down who are counting on us, if that makes sense. Because we're not even close to doing like what you do in terms of actually helping people understand like, day to day management and things that are actually gonna improve their health. But I think that what we do kind of gives it fills the space of the mental and emotional support that a lot of T Wendy's and a lot of kids and a lot of caregivers need. Yeah. And so like, we feel like we give a little bit of community. And we're kind of a sounding board, sometimes less about giving advice and more about just I hear you, I see what you're going through. Maybe this thing that we did this one time might help you and you can think about it this way. And so when we're not there to do that, and we're not being picked up by the algorithm, then I feel like oh, we're not going to be reaching that one person that might have really needed to see this video today. So yeah, definitely. That's definitely there.

Scott Benner 59:44
Yeah, it can be a thankless job and the and I'm assuming you don't make a living from it, right?

Aimee 59:51
Like, no, no, no,

Scott Benner 59:52
I mean, I would love to but you're doing it, you know, for for the response to that and for what it gives to other people.

Aimee 59:59
Yeah, exactly. I mean, it helps us maintain that, you know, the 10% discount here for our, for our followers 10% there. And I know that, you know, for some people that 10% could make the difference between them getting their kids the patches or not, or getting themselves the patches or not. And so if us, pushing ourselves to make content in order to keep those things going, is what's going to facilitate that, then that's for right now that that's enough, because I don't ever see myself. Like I said earlier, this was never something that I would have envisioned for myself. It's not like, this is my niche. And like, I've always been good at this or something. And, and it happened to coincide with us being diagnosed like, this is not something that every day I turn on my phone, and I have to teach myself, like a new piece of technology to keep up with what's going on.

Scott Benner 1:00:47
You're not a kid anymore, Amy.

Aimee 1:00:49
I'm not. And it's not always enjoyable. I mean, the editing of the videos and stuff down, it takes a lot. It's a lot of meaning to do with the podcasts and stuff and much longer format, obviously,

Scott Benner 1:01:02
I had off tomorrow. And I didn't block the day for some reason on my calendar. And the other day, this this kid, the kid, like under 18, like a teenager wants to be on the podcast. And as I go through the whole thing, I'm like, let me talk to your parents while I send, send her a link and I say, okay, look, you use this link. And but I'm telling you like, there's not going to be a day until like, I know, this sounds crazy, because December 23 won't be a day until like, I don't know, I mean, September or October of 2023, reconsent up a recording. As much as I tried not to bloat my schedule. I was like I tried. So I just screwed it up. And I just, I hear from people, I'm like, That's interesting. Let them come on. Let them before I know it, I'm full. And so I so she pops on. And December 21 is open. And she just and she just takes it. And I'm like my first like, I get the email and I'm like, I'll just email the person back say, hey, that day wasn't supposed to be open, just go pick another day. And then I looked at my salts this girl and she's younger, and she's excited. And I was like, oh, okay, I'll just do that. Or yeah, I'll do the try. And then my wife's like, what are you doing? And I'm like, I'm just gonna record she's like, we have a lot to do for the holidays. And I was like, I know, I'm like, but I'm gonna just record tomorrow for an hour, you know? And it's the editing part. There's no way anybody would understand. It's no, it's a massive chunk of my life. And it feels like, I mean, I'm sure all businesses are like this. And I hate to say that this is a business, but it is, you know, and it's a business that happens to be helping people. It's not selling people cars, but it's still it's a, you know, it is like I have to do things on a schedule. I have business relationships, I have to maintain, there's contracts,

Aimee 1:02:47
a lot of administration

Scott Benner 1:02:50
aspects who have no idea. And so you just feel like at any moment, I don't know, it could just disappear. I feel that all the time. And I mean, yes, you wouldn't want your business to disappear because you're paying your bills with it. But or maybe it's part of who you are, or a number of different reasons. But for me, I feel the same thing you're talking about. It's like, I know, somebody gets helped by this. And if I don't make this show, then that stops. And you might think, well, how does talking to Amy, about her and Riley and Zoey and her sister? Like how does that help people's blood sugar's get better? It does. It may be we say something today that helps someone's health. But more specifically, we might make a fan of the show. And then that person might then pick through the show more and go what is bold beginnings? Or what is the finding diabetes? Or what is it a protest, which is where you're going to get real, like management stuff that's going to really kind of pull it together for you. So it's not as easy as just saying, hey, there's 25 episodes here. They're called protests if you read if you listen to them. I mean, honestly, I just got to review the other day. Because I say sometimes listen to the protests, your blood, your agency will be in this in the middle of Texas. And I got a note from a guy and said, just like the guy promised, I listened to the protests. And this is my one say. And so like when you know what actually works. I feel there's a pressure and there's a responsibility. Yeah. And then when you know that the format you're using is social media based, do you think oh god, like? What if the algorithm comes from me and just stops telling people about the show? Or, you know, like, what if people just stop sharing or if it isn't funded? I try not to think about it, but it's there, you know? So anyway, yeah, that's pretty much it. I just complained about having a podcaster people right now there's some somebody right now is under a truck, taking off an axle and there's like, hey, this guy's life is terrible. He had to edit a podcast and he's worried about the algorithm.

Aimee 1:04:47
Well see, that's that's what I was saying earlier. It's not so much that we're lucky we get to do like that we have to do this or whatever. It's more like we're gonna be diabetic or we're gonna have diabetic kids or be diabetic, whatever. Regardless There's no way of changing that at least we get to have a voice about it and and do something, get squeezed something out of it. That is good in the end of the day.

Scott Benner 1:05:11
No, I'll please, I'm, it's, it's the greatest, most lovely thing I've ever done in my life. And I really hope to just do it forever, in a way that helps people. But I also don't want to be at the end, where I'm just like sitting back in this chair going like, so Amy diabetes haco. Had you talk, you know, I don't want to go, I don't want to get bored by it. And, and it stopped being? You know what it is? But I guess that people would sort me out if I did that.

Aimee 1:05:37
Oh, yeah, I'm sure they'd be calling you out. Yeah, that's

Scott Benner 1:05:39
what I need. Is there anything we haven't spoken about that you think we should have?

Aimee 1:05:44
You know, I didn't want to mention, because we were talking about insurance and all that the kids recently, were in Florida. And I'm sure this is different for every state. But in our state, we are, we're not well off by any means. But we do make more than what the threshold would be considered for SSI or disability. And, you know, we applied anyways, with the kids even knowing that we were just a little bit outside of that, that income range. And we actually were able to get thankfully disability for both the kids. And I think now, I'm not 100% sure if it's due to their age, because I've read in some places they say it's because they're under six. But even if just like one person out there is considering applying, but not sure because of either income or age or whatever, just do the application, I really wanted to put that out there because you never know, get on the phone, talk to the person explain your situation when you're going through the application process. And you might end up in a situation like us where you know, we were approved. And And now for the first time ever last week, we picked up our insulin for $0.00. And yeah, co pays for as you can imagine, with two kids, even on our insurance from my husband's job, we were still paying 65 $75 Each as a copay. Now with this, we still get to keep seeing our same doctors, but the the disability insurance or the Medicaid will act as a secondary and it picks up the rest of that copay. So now we just saw both of our we saw our endocrinologist on Friday, and $0.00 there. And it's just, it's work. And you have to have your ducks in a row, get all your paperwork together, you know, plead your case, but maybe you will get somebody who will listen to you and understand and do whatever they can to help push that paperwork through for you and and find yourself in a situation where you're a lot better off than you were before. So I just wanted to share that. Definitely.

Scott Benner 1:07:43
That's amazing. How long did it take you to like figure that out, put it into place, make it happen?

Aimee 1:07:49
Well, so it was they were diagnosed in April, and we meant to do it right away. But between one thing or another, we got scared off of it. Just hearing people say oh, we were denied, we were denied or denied, don't even bother. So we did it. And then in August, we put in the application August of this year, and by September, we had our second phone interview, and we were approved on that second phone interview. And coverage started in October. So it was a couple months from start to finish. But once we were approved in October, the benefits were retroactive. So they covered us for the months leading up to it. So like Riley had been in the hospital with the stomach flu in September, and we just had to fit out a little paper for the Medicaid. And then they went back in and they covered what was leftover from that hospital bill. Even though it was from before the Medicaid it actually kicked in cheese. That's terrific. Yeah, it's it's fantastic. And it's it's not easy. It's tedious. It is time consuming to go through the process. And once you have it, you do have to get things like referrals and things like that. But it's definitely worth it considering how expensive you know, diabetic supplies can be especially Omni pod Omnipod. Five, the kids are on that now. And now we're getting it covered 100% as well for the new year with a prior authorization and the Medicaid. So there's, there's definitely something to be said about just going through the process. And the worst thing that can happen is you get denied, you still get an appeal, maybe on the appeal, you get approved. Maybe not. But at least you can say you've exhausted every avenue, you know, that's amazing.

Scott Benner 1:09:15
Good for you. Who who put you on to that you figure it out yourself? Yeah, sort

Aimee 1:09:21
of. So I had been kind of which I haven't done it for myself. Technically, I qualify for disability with lupus, but it's a very exhaustive process, especially for an adult. Okay, so I had kind of been thinking about like, Oh, I wonder if the kids qualify, and especially, you know, like with Riley being autistic, we thought, well, if anyone will qualify, at least she will but we'll apply for both anyways. And that will help us a lot because she has a lot of therapies and each one of those therapies is like 3040 bucks a week, etc, etc. So we said well, we'll just give it a shot and we'll try it out and and sure enough, we're getting getting ready to sign her up for equine therapy, because the Medicaid covers it so she'll have like You get to actually be like outdoor farm and have like horse riding lessons and get to be like with the animals and stuff like that something we never would have been able to afford or even think about. It even existed. But through this whole process, it was something that came to light. They had like art therapy, they cover swim lessons, tons of different stuff. And like I said, it'll vary state by state, but you won't know until you actually get on the phone and talk to somebody and go through the process of applying what you may. And if you don't qualify for that they may have other programs within the state that help that might help you cover costs related to the diabetes. So

Scott Benner 1:10:33
if you've ever ridden a horse, it's one of my life some sadness.

Aimee 1:10:39
Do they have horses? I'm gonna pull like a you know, you're always picking on the good. Do they even have horses in New Jersey? We have horses. Is that a thing?

Scott Benner 1:10:49
Yeah, the horses own their own guns and they run a mob thing. Obviously, because it's in New Jersey. New Jersey is a lovely place. Yes, a lot of green, a lot of trees. It's a lot of farmland, and it just it's got that nice, you know, the I 95 corridor or the were the turnpike. You know, everything that's sort of clustered around there. I think that's how people see the states. I'm learning this by the way by driving Arden to college, and back okay, so people are gonna you're

Aimee 1:11:24
only seeing like the stuff right off the highway when you're getting off a restaurant.

Scott Benner 1:11:29
I'm obviously a pushover because Arden's been in school for 10 weeks. And she's home now for the holidays. So I've now driven to where she goes to school, and back again three times, I went down once to see it right. So that we could like take a tour, we stayed for a couple of days, looked around the school, look around the town, that kind of stuff. So that was once down once back. I know I'm supposed to say that often goes to college in Chicago. But anyway, it was like, like 750 miles one way. So I didn't want you drive. Basically, if you just really hammer and don't stop, it takes like 13 or 14 hours to get there. Oh, and did it the first time. I was like, okay, she likes the school, whatever. Then the second time was to take her down. We obviously had to take her there. But art in traveled like the Queen of Sheba, which I don't know if he's even the thing you're allowed to say anymore, because I don't even know what it I don't even know what it means. It just feels like something that a group of kids at Stanford were telling me I can't say anymore. But anyway, I don't know what any of that means. I'm just, it's a colloquialism. And everyone has to live with it. I don't even know she was a real place. But the she, I'm just trying to say she had cars full of her belongings. And then when she it's time for her to come home for the holiday, she says I have to bring a lot of these clothes home. I'm like what she has some of them I don't need some of them are, you know, specific to certain times of the year? I just needed to get them home. You're gonna have to come pick me up, as I was thinking you'd get on a plane, you know? She's like, No, you have to come get me. So I drove again. 750 miles just be by myself. By the way, I was still sick. I basically got I got a steroid pack from the doctor. I was like, listen, in lieu of giving me like cocaine so that I can get through this. Can you just give me a steroid bag, so I don't die trying to drive to this place. And so I'm on steroids, I make it down there. Something happens with traffic. And I'm not going to I don't end up getting there when I expect to. So now I'm like going to arrive at like three in the morning. And I'm like, Well, what am I gonna just sit on the street in my car. So I stopped, I got a room, I slept for four hours. I got up, I drive like the last hour, and I pick her up. We drive home in one shot together. And now this is my third time going up and down to this, this this location. And I'm just like, I'm now driving like a lunatic when she's like, are you not worried about getting a ticket or us dying? I'm like, No, I don't even care anymore. So I think the next time I do it, I'm probably going to be going 120 miles an hour. Just because I'm like, I don't want to I don't want to do it anymore. But she has to go back in 1516 days. So I'm gonna have to drive down there again and drop her off. And then because she's gonna go with a different load of clothing. This is our fault for letting her do like, like a fashion thing in school.

Aimee 1:14:15
Just mail it it's Can you just for

Scott Benner 1:14:18
like $3,000 For what it weighs. I can probably ship

Aimee 1:14:22
stuffing, you stuffed it into space bags. You're

Scott Benner 1:14:24
not You're not seeing the picture me for what the picture is. There's there's like, there's, I'm worried that in the four years she'll be there. I'm gonna get too old to lift this stuff. What do you think of that? So, oh, I've kind of been like, hey, Arden maybe you don't need all this stuff. You know, like try to really ration this out a little bit. But I think I'm going to be picking my princess up in a state far, far away for the next three and a half years. I'm gonna need a new car. I'm gonna put too many miles on it. I gotta be able to. I don't know. I anyway, I'm happy to do it. I actually like it. It's The only time I take off, so it's like four days off for me. Because I leave and I drive down and my car is nice. I'm not working. And, you know, although I do miss talking to people, isn't that interesting,

Aimee 1:15:10
like when you're working like your work from home person or like a stay at home parent, how you don't, technically like you have, you can take time off whenever you want, not whenever you want, but it's a little bit easier because you don't have to submit something to a corporation to get approved for time off. Yet you almost never actually take time off to like just for you to relax.

Scott Benner 1:15:31
My spirit likes to different people, there are people who are constantly taking time off and saying they're working. And there are people like me who just like, I just never stop. And it's why I'm telling you the COVID thing. Like bringing people home from offices for a certain amount of those people. That's the worst thing that's ever happened to them in their life. Yeah, because they just don't know how to stop. So function outside. My wife's one of those people, she needs there to be an end to the day. Honestly, she needs somebody to say, time to go home. That and if she doesn't have that she just keeps working.

Aimee 1:16:07
Yeah, I'm like that. And I will just like all get fixated on like something a task, I'll always find there's always something to do. Like I have two modes I have lupus is acting up or my body isn't cooperating. So I'm literally like a potato, then I I don't even talk to me because I'm not even I can't hear you get just a sack of potatoes, or I have like super hyperactive cannot stop doing anything. I will be painting the walls of this house at two in the morning and rearranging furniture mode. that's those are my two extremes. There's no in the middle. It's one or the other.

Scott Benner 1:16:42
I really do. So anyway, I like going don't get me wrong, my son's getting ready to move away. We're never gonna see him again. And if he told me that every four months, I had to drive somewhere to pick them up. I I'd be like, okay, you know, so I was thinking about this the other day, you were talking earlier about how you and your husband were talking about like a thing. I was thinking the other day, I really am that person. Like in a perfect scenario. I see my family is gathered in the kitchen living area together. And it's not specifically doing anything, just sort of being in each other's like, orbit a little bit. And I realized that like that's, that's a good day for me. Like I don't I don't care that we didn't go somewhere or do something or climb a rock or I don't know, whatever people do. Some people do that. I would just never, I would never find out just so you know, like, oh,

Aimee 1:17:39
it's because do I owe you? Do I owe you money for being able to?

Scott Benner 1:17:42
Yeah, 50 cents an episode, you gotta buy all 12 or 16 a month, and it's $48 a year. And if enough of you do it, then I'll be rich. And then we can just make this pot,

Aimee 1:17:52
I can do the I can do like a bilingual version for you. Like you can charge like for the two separate, you have English cursing and Spanish.

Scott Benner 1:18:00
If I had, if I had a million dollars a year, I would, I would make I would first thing I would do is hire somebody to translate the Pro Tip series and all those series and stuff like that. But anyway, that's trust me. It's my idea. I've had it for 10 years, I bring it up every company I work with, they're like, that's a great idea. And I'm like you want to pay for it? No, not Not really. Oh, okay, great. Anyway,

Aimee 1:18:22
we don't have anything we can tap into. Like I'm saying we like if I'm part of this. You don't have anything anyone like you wouldn't want to tap into like the group and see if there's somebody was in the group. You wouldn't know,

Scott Benner 1:18:35
let me tell you something honest. Okay. Not that not to the rest of it hasn't been honest. But this is just gonna say it's gonna be beyond polite. people reach out to help me constantly. And many of them are lovely. And some of them are what my grandmother would call it, Nick. And, but they're still well, meaning next. Some people overestimate they let their excitement overestimate their ability to help. So they start off like shot out of a cannon and I'm like, great, you know, this, you know, do this. Can you make, you know, images for social media? And they're like, oh, my god, yeah. Like, there used to be this group of people who were like, We're gonna listen to every episode and do better show notes for you. Because your show notes suck, and my show has to suck. Here's what yours is gonna say. Amy has. Amy has lupus. Some other stuff wrong with her. Her kids have diabetes and autism. Like I'm barely talking about date, by the way, and I'm not going to like literally won't I won't do much more than that. So this like group of like, really motivated people. Like for like a month. They all took like 10 episodes of the podcast, they listened to them took notes and turned them into these amazing show notes. And then they just stopped and I was like, Okay, thanks, like, but now I have great show notes on 70 episodes. The rest of them are like Amy, Amy, as you know, and so Look, I'm because I can't do it. Because even when I'm talking to you, right, I don't know what the hell we talked about. You know what I mean? Yeah. And I can't go back and listen, just to take notes. Like, I have to have time to sleep. So anyway, people show up. Really wonderful people very well intentioned, they really want to help. But for the most part, I'm going to tell you that 98% of them, just thankfully, now, yeah, they flame out and very quickly, and it makes it just a waste of my time. So the people who have panned out so far are Isabelle, who helps with the Facebook page. And it's only because it's like, she and I have the same brain about this. Her first contacted me, she's like, I understand what you're doing. And I was like, Well, this is either going to end up with me being murdered, or me, you know, let me find out what it is she thinks I'm doing. But I'll be damned. Like everything I do, like even like kinda like the slick stuff that you don't see. Like earlier, I brought something up to drag the conversation in a different way. And you're like, it's funny, you brought that up? And I thought, No, it's not I did it on purpose. But But, um, but like little stuff like that, she sees it all. And she's the right age and the right temperament and the right intelligence, the right everything, she just fits. She doesn't want to be the person that she's not like, just gonna do one thing, and then send me a note and go, can you pay me because No, I can, if I could, I would have just hired you. You know, like, stuff like that. And there's a few people who help on the Facebook group as well. I don't know if they want their name, shout out. There's three lovely people that just kind of drop links in and help people when they ask questions. I've never asked them if they want their name on here, so I won't just say them. And there's a person right now who's, uh, who's helping me with a couple of specific tasks. And but she'll be gone pretty soon, too. And she's doing a great job, like putting together a survey for listeners and a couple of other things. But for those five people, it took me 10 years to find them. And there's 4050 I'm not, I'm not over exaggerating people who, who contacted and were very nice and wanted to help and then just sort of disappeared. So anyway,

Aimee 1:22:06
I don't think anybody really realizes like, what we're, we're touching on earlier how much work it really is,

and what it takes to maintain it. It's not just doing it once, and you get that, that excitement. And you Yeah, I did the thing. Okay, you gotta do it, like 800 more times.

Scott Benner 1:22:23
Yeah. It's just just what it is, you know, it's not a big deal. But yeah, but I put at least 70 hours into the podcast every week. And like, even sitting here right now, I'm, like, in the last hour and a half, like right before you jumped on. I'm asking people if they want me to be Hawking CBD oil, because some major companies asking me to be an ambassador and my friend, I emailed him back, I'm like, No, I don't want to please leave me alone. I don't want to do that. And the guy's like, Are you sure? Like, you know, your audience might really want it. So I'm like, Oh, I'll do a poll. I'll ask people if they want it. If they do that, I guess I'll do it. But I don't want to. I'm asking people if they want a holiday story read for the podcast, which is now a thing people are asking about. I'm thinking of doing a live session, like maybe on New Year's Day, or somewhere around around New Years, where I'm going to go online, and every 15 minutes, let a new person come on. And I want to see how long I can record with a different person for 15 minutes. Like, oh, that's cool. I don't know. But

Aimee 1:23:22
all that like a podcast roulette?

Scott Benner 1:23:25
Yeah, just keep going. You know. So anyway, and I don't know if I'll do that. I

Aimee 1:23:31
think we accidentally put a little bit more on your plate the other day with that there was a post in the group, where someone was kind of asking like how to swag like a certain meal, I think it was a Mexican food like dish. And then everybody was just going off on it. And then I tagged these events. And I was like, Alright, I tagged you as well. And I was like, you guys should make this like a weekly thing. Because people love this like that. You're like just being able to guess and kind of see everybody's thought process of how they chose and why they chose. I think it gives a lot of insight. And actually, it sounds like more work. But it might be less work, because I'm sure you guys get all the time like, oh, Scott, how do you dose for that? And why do you dose it that way? And I'm sure you get that question like, I mean, I get that question on our social media, we're not even out there giving this kind of advice. So I can only imagine, well, here's but that might be like a way to facilitate like the group to continue to help each other in a way where you're not necessarily having to be directly overseeing it. And like, you know,

Scott Benner 1:24:25
terrific idea. And here's why it won't work. And I can't put any effort into those posts pop up and get organic on their own. When you start turning them into a weekly thing or the thing that happens on Thursday, they die very quickly. Nobody wants to be told when to have a thought. And just because that thread looks so popular that day, you could have moved that that thread three days sooner, and nobody would have clicked on

Aimee 1:24:53
it and nobody would have seen it. Yeah, well, it's the algorithm and even within like the group itself, like how posts get organized and And, and how they show up is a lot. It's based on that too. So I imagine that would affect it a lot.

Scott Benner 1:25:06
I tend to think of it as an organism, that just, it does the things that the organism wants, when it when it needs. And you can't tell it what to do you know how many times people say to me, you should put up a post for every episode, so that we can talk about the episode inside of the post. So we so we do that? No, we do that. It's because everybody wants it. They are some of the least looked at posts that exist. Like nobody looks at them. Yeah, so everything I think they want. That's another secret about doing something for people do the opposite you well, they don't know what they want. If they knew what they wanted, they would need it. If that makes sense.

Aimee 1:25:46
Like so yeah, they would you they'd be able to just go and grab it. Yeah.

Scott Benner 1:25:51
Basically, part of my job is to know what you need, not what you think you need. And then and then the podcast because becomes an organism. So you don't think of it that way. Because you're not thinking of it like that. But the flow of every week, or every month or every year, I am sort of orchestrating that flow by putting it together. Like it's not as you know, I don't, I don't. Sometimes I do. Like sometimes I'm like, Well, this episode goes on Monday, because that episode will feed into this one. And this one will bring up this topic. And then next week, that topic is going to come up again. And it'll reinforce it. Like there's there's that going on. And also because I record an order, and then I put my stuff out in the order I record, you are basically getting my concept of diabetes in real time, six months behind when I'm having it. That makes sense. So anyway, there's a lot happening. And it's, I would love it if somebody could help. But the truth is that I think it works because it all kind of comes out of my head. Anyway, I can see that. And not because of me. But just because there's a fluid idea. And I don't have to go into a meeting and hear from five people who have a thought about so like this thing I'm doing right now I'm putting the survey together, it'll go out pretty soon it will be out for a long time, by the time somebody hears this. And it's just the ask some questions to kind of figure out where the podcast is helping people and, you know, etc. The person who's helping me with it said to me, this is the fastest thing I've ever accomplished in my professional life. And I said, Yeah, you know what this is right. And she goes, why I said, nobody else has an opinion, but me. Like we're not sitting in a room with six people are like, I don't like that question. And then we don't talk about it for an hour and a half. And then make another meeting three days from now to come back and look at it again. I go take that one out. Put that one in, say this say that this is what we're doing. Then I look at her go. What do you think? And she gives me her opinion. Oh, Val, you're right about that. Change that to that. Put this here. I don't agree with you about that. But good point. And now it's done. And yeah, you know it just when you don't have to? I mean, it's too many cooks, I guess is the easy way to say it. I think it ruins the stew. Yeah. All right. Definitely. Amy, tell your children that I personally, the guy from the podcast said hello to them.

Aimee 1:28:10
Oh, they know. They know Scott, in fact, well, they're out there somewhere in the living room. But Riley wanted to tell you this morning she woke up and she said I'm going to tell Scott my ABC was 6.40 me it's for a one. Oh,

Scott Benner 1:28:24
I took I understand. You want to get her into telling me before we're done?

Aimee 1:28:28
Yeah, I can do that. Let me see if she'll be up for it.

Scott Benner 1:28:32
If not, then you know, don't worry. Yeah. Okay, hold on. Bonus coverage. People do want CBD oil. Are you serious? I thought this was a no. Oh, this person takes a quarter of an edible gummy. Severe pain. I use CBD for compression fracture my spine. I had a cat with skin cancer. She was on CBD oil. I do the legal kind of helps me sleep. I would like to learn more about it. I use it for my autoimmune arthritis. So a lot of people here but most people said no. But why in case you wonder. I'm talking to Donald Trump. Pick

Aimee 1:29:03
up the headphones. Okay, here we go. I'm not going to talk. You're not going to talk. You don't have to talk. Yeah, don't talk if you don't want to talk to headphones in your ears. You can hear Scott already

Scott Benner 1:29:14
is this Riley? This is Riley Raleigh. If you don't want to talk you don't have to talk. Okay, don't say anything.

Aimee 1:29:22
Yeah, now she got shy. That's okay.

Scott Benner 1:29:24
I'm waiting for that to happen. Does she remember meeting?

Aimee 1:29:30
She does. Yeah,

Scott Benner 1:29:31
she does. Probably one of the best things

Aimee 1:29:32
she was Yeah, I'm sure she was remembering when we were having when you had the Zoom recently. Any any gave her her shout out that you said that there was a secret message for somebody in the room that only one person would understand. And then you said Paw Patrol. She got such a kick out of that.

Scott Benner 1:29:53
Paw Patrol. That should be my that should be my nickname. Honestly. I would.

Aimee 1:29:57
I should be the name of the episode. Yeah, you think so? Should I just need an episode you might have? Maybe? Probably not though. You're gonna you're gonna name the episode. Did I just need the episode?

Scott Benner 1:30:08
No, I was thinking Paw Patrol. Actually, I like how she's like, I'm not talking. That's enough of this. I believe in the room. Goodbye. Only Yeah,

Aimee 1:30:15
no, she's sitting here. She's She's sitting here baring her face in my arms and covering her ears. She's like, I don't even want to hear it. But I guarantee you the minute you get off of the call, she's gonna be like, I want to sing a song or she'll come up with something.

Scott Benner 1:30:30
Yeah. Well, I'm glad that her ABC was 6.4. Is that what it was? 6.4 her ABC

Aimee 1:30:35
was 6.4 or ABC. And so her and Zoe's was 6.2

Scott Benner 1:30:40
Wow, good job. That's excellent.

Aimee 1:30:42
Yeah, they're they're killing it. Because Mom and Dad do what mom and dad do. But honestly, if they weren't if they weren't on top of and open to things like having the Omni pod and and the constant finger pricks and things like that, that decks calm. Then we wouldn't be able to manage as well as we do. Honestly. What are you pretending? To some? Who are you going to talk to? Okay, but who are you pretending to talk to? You

Scott Benner 1:31:21
Hey, you know what, Riley?

Aimee 1:31:23
Mommy? Right. Let me let me unplug this. Maybe she can hear your voice. Okay, you're on speaker. Okay.

Scott Benner 1:31:30
Yeah, Riley you don't know this. But other people may podcast and they're pretending they're talking to some people too. Oh, no, that didn't work. No. Okay.

Aimee 1:31:40
Can you hear me now? Yeah,

Scott Benner 1:31:42
I made this silly. Silly. It was a mean joke, but not towards her. I said there are other people have podcasts and they're pretending to talk to people too.

Aimee 1:31:54
That is a means to true joke, but it's a mean joke. Yeah,

Scott Benner 1:31:59
it's really true. You guys have no idea. Okay, well, I'm gonna let you go. And I'm gonna go.

Aimee 1:32:04
Well, last thing I need to say. Because I promised someone I would say go ahead. I promise guy that I would say how happy you are on a pod. Because you have to say Omnipod pod. And every time I say Omni pod, I feel like I'm saying it weird now because so many people say I'm no pod. So I told her I would say Omnipod and give her a shout out. If it isn't an omni pod. It is Omni pod. Yeah, she says Omni pod like with an A

Scott Benner 1:32:31
my my very close contact at Omni pod. He says on the pod. So really, yeah. Every time we're on a call, or I can I can hear his voice in my head right now saying Omnipod.

Aimee 1:32:45
So many people on Tik Tok and Instagram even I hear all the time. And I'm always like, maybe I am seeing it wrong. But then I look at it. And I'm like, No, it's got an eye. It's spelled with an eye. So it's Omni pod.

Scott Benner 1:32:55
Yeah. Would you ever hear Elon Musk say Tesla?

Aimee 1:32:59
I have not No, like Tesla. So Oh, like with the Z?

Scott Benner 1:33:04
I think it's the South African thing. But. But still, it's just everybody says stuff differently. Who cares? Doesn't matter. As long as they listen, as long as they go to omnipod.com forward slash juicebox to buy one. I don't care what they call it. Alright. Go ahead and live your life. I'm gonna go Christmas shopping. Excellent.

Aimee 1:33:20
Thank you so much for having us. And yeah, well, we'll just keep doing what we're doing, I guess, and just everybody manage your diabetes, to change your plans. It's

Scott Benner 1:33:31
a pleasure. You have a wonderful family too. And I want to I want to thank you for sharing with me, on occasion and with everybody else is very, very nice to you to be this open about it. I appreciate it. Yeah.

Aimee 1:33:42
Thank you so much. Well,

Scott Benner 1:33:44
Merry Christmas.

Aimee 1:33:45
Merry Christmas. Happy holidays. Have fun driving back and forth.

Scott Benner 1:33:49
Oh, it's gonna be the best. Hold on one second. All right.

I want to thank Amy for coming on the show today and sharing her story and telling me about her girls. I also want to thank ag one drink ag one.com forward slash juice box. Get that free year supply of vitamin D and five free travel packs with your first order when you use my link. And don't forget to check out touched by type one.org and find them on Facebook and Instagram and give them a follow touched by type one.org. If you're enjoying the Juicebox Podcast, please share it with someone else who you think might also enjoy it. And don't forget to check out the private Facebook group that now has 41,000 members in it. There is a conversation happening right now that you would enjoy being a part of Juicebox Podcast type one diabetes on Facebook, but let's be honest, I don't care what kind of diabetes you have. Everyone is welcome. The diabetes Pro Tip series from the Juicebox Podcast has been professionally remastered for better audio quality, and it will appear again in your podcast player at episode 1000 That's coming up in just a couple of weeks, the diabetes Pro Tip series, which is me and Jenny Smith, setting you up for success with diabetes. When it comes out if you've heard it before, listen again, if you've never heard it, I really hope you give it a try. I think it's going to lead to the kinds of successes that you're hoping for

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