#1457 People Are People

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Fatima, 34, from Bahrain, shares heartfelt insights on T1D management, drawing from her experience with her son, diagnosed at 2 and now 4.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome back to another episode of The Juicebox Podcast.

Fatima 0:15
My name is Fatima. I am a mother of a type one boy. He was diagnosed when he was two years and four months, and he turns for tomorrow.

Scott Benner 0:27
Please don't forget that nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. I know this is gonna sound crazy, but blue circle health is a non profit that's offering a totally free virtual type one diabetes clinical care, education and support program for adults 18 and up. You heard me right, free. No strings attached. Just free. Currently, if you live in Florida, Maine, Vermont, Ohio, Delaware, Alabama or Missouri. You're eligible for blue circle health right now, but they are adding states quickly in 2025 so make sure to follow them at Blue circle health on social media and make yourself familiar with blue circle health.org. Blue circle health is free. It is without cost. There are no strings attached. I am not hiding anything from you. Blue circle, health.org, you know why they had to buy an ad. No one believes it's free. Today's episode of The Juicebox Podcast is sponsored by the ever since 365 the one year where CGM that's one insertion a year. That's it. And here's a little bonus for you. How about there's no limit on how many friends and family you can share your data with with the ever since now, app no limits. Ever since, friends touched by type one's walk is coming up quickly on March 8 at the Saturday at Lake Eola Park in Orlando, Florida. Go now to touched by type one, to sign up and register. It's completely free. You're gonna have a wonderful time touched by type one.org, go to the programs tab, click on Steps to a cure. My

Fatima 2:11
name is Fatima. I am a mother of a type one boy. He was diagnosed when he was two years and four months, and he turns for tomorrow.

Scott Benner 2:21
Oh my gosh, you're not even two years into it, though. No, no, we're not two years Okay. Well, happy birthday to him. That's wonderful. Thank you.

Fatima 2:29
Thank you. He wants a Paw Patrol birthday, so he's getting one paw patrol.

Scott Benner 2:33
Yeah. Oh, there are people listening who will be super excited when they hear that. That's excellent.

Fatima 2:38
Yeah, you're past that phase, but people will relate. No,

Scott Benner 2:42
no, I'm thinking of two little girls specifically whose mom listens, and they're going to be very, very excited. So okay, well, excellent. Well, enjoy your paw patrol birthday. I hope that's wonderful. Yeah, of course. How did you notice that there was something wrong a couple of years ago? Right? So

Fatima 2:57
I'm not just saying this because he's my son, but my son is the life of the party. Like, if I'll take him to a birthday party, and you don't know how the birthday kid will look like, you'd actually think that my son is the birthday kid. He's always there the middle dancing, and he's happy and jolly, and it was like something switched that off. This was the first thing that I noticed. It's that the change in behavior. I was a grumpy he was soul king. He just didn't want to participate. All of the sudden, even his teacher in his pre nursery noticed that he was not being himself. So he was like, Okay, I remember. And just it makes me feel so bad remembering this. But I remember one day, was talking and crying about, technically nothing. I was trying to, like, lighten the mood. And I was dancing with him. I was saying, Oh, terrible twos. Terrible twos. Is that the terrible twos they're talking about? But, and then he

Scott Benner 4:00
was like, No, it's diabetes, but thank you. Yeah.

Fatima 4:06
And then I noticed it was, it was around winter. It was, yeah, January, December, that we noticed he was, like, peeing through his onesies, and we would be waking up five times a night. And he was like, he will be wet, like he we would be changing everything five times a night. So I was asking around. Everybody was saying, No, it's winter. Boys do that. Yeah, once, once a night, once in a blue moon, not every night. I just knew in my like, we do not have type one in the family, but it's just mother instinct. I knew something was wrong, and when you just Google it, it's it's there. So I was determined to take him to to his pediatrician one evening, and on that morning. Think I dropped him off into to his pre, pre nursery, and he used to be, like, excited just seeing the door on that day, he started crying, saying that he's tired. He just want to go to his grandmother house and sleep. This is after me, like, after 15 hours of straight sleep, we will be like, shaking him to wake up, and he he just still tired. I remember that I forced him to walk the couple of steps towards the the the nursery steps, and he took one step and then lay down on the floor in the street saying that he'll just sleep there. Oh yeah, that's how tired he was. Yeah. Yeah, oh my gosh, yeah, yeah. Now looking back, I was like, how could it? How could I just, how did I just leave him and nursery that that night

Scott Benner 5:51
is he, you have other kids. No,

Fatima 5:54
he's, he's my, my, my first born and only

Scott Benner 5:59
born at this point. So you have no you have no practice either, right? No,

Fatima 6:03
no, yeah, no, no. Like these days with social media, you, you sort of know what to expect. And I have cousins with with kids a similar age, so I'm you, and then you also compare two weeks before and at this point, and he's a completely different person.

Scott Benner 6:24
He changed so drastica, I have to say, while you were talking, I opened up chat GPT, and I just asked it, if my two year old is sullen and wetting the bed, what should I be looking into? It listed physical, emotional and developmental stuff, but under physical health, it said UTI, constipation or diabetes type one. Yeah,

Fatima 6:41
yeah, yeah. So at that night, I took him to the P the pediatrician, alright, and I just listed this. I went in and obviously, and I have to put it out there, they should stop giving lollipops to kids in hospitals. Like, what are they trying to do? Really? It just, Oh, my God. It still makes my life so difficult. I have to carry these lollipops that I don't have to Bolus for. So anyways, they handed him a lollipop in the doctor office. We walked in, I saw the doctor. I KNOW Him from before, obviously. And I told him, these are his symptoms, prick, yeah. So he was like, Oh, this is what's the issue with all of these educated mothers. If he just Googles things? I was like, no, just Prick him. And then it says, H i,

Scott Benner 7:36
yeah, yeah. Did he really hit you with the if you would have stayed in the kitchen. You wouldn't be here bugging me about

Fatima 7:42
this. No, no, no, he didn't, which was, like, he didn't want me to make it. He was like, Oh, the internet. Yeah, change, yeah, the internet, yeah. Let's blame the internet. Yeah. I just saw panic in his eyes. Obviously, I didn't know what H I meant, like, it's high, high. But no, the shock in his eye as and he was like, panicking, and he told his nurse to clean his finger again, Prick him again. And then he was like, Okay. It was like, mind you. It was like, around 8pm he told me, Okay, call your husband and go to this clinic. He gave me the clinic's name. He's a child indo, and he's my friend. Okay, do not go back to the house. Just go to this clinic. It's his private clinic. Go straight and let your husband meet, meet you there, right? And I'll speak to the Endo.

Scott Benner 8:38
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Fatima 9:51
he says, I remember that him saying that his his sugar is high and that there is no child in go in, in the hospital. In that he is working at, so he can't help me. I see okay, and so I called my husband. He met me there. It was, like a 20 minutes drive. It was a private practice. We walked in. They checked his a 1c, and I was like, you know, like, I remember just being like, blank, like I had and just like I felt the tears were were were starting to like my eyes were, were watering. I I really didn't know what to do. What does this mean? It was just like I wanted him to tell me that this was, like some sort of a mistake him. I remember him saying, This is what I remember that the doctor was saying. He said that his HPA 1c is nine, and he's not in no danger of DKA. So he told me to go back home and to head the next morning to the main government medical complex in the country, because if I go now, they won't do anything. There was no doctor on call. Tell people where you live. Oh, sorry, I live in Bahrain. Okay. It's a small country in the Gulf. We always say that it is near Dubai, but it's like a two hours flight. But that's why, where people recognize it as, yeah, all right, so it's really small country. People know each other, the child and go actually knew my my aunt. She works with him in the in the hospital. So I actually had doctors in the family as well. I remember that leaving the private practice, I felt so lost. This doctor didn't even say that my son has type one diabetes. He just said that that the the HPA 1c is nine, just go back home, come back tomorrow morning. First thing, okay, like this. This all the context that that I had. I left, I called his pediatrician, the one who told me to go to this doctor, and I was bawling, like he was crying and crying, and I I asked him, Why is it my son? Why? Like, he's like, have we've done everything right? Like, how could we have caused this? And he was like, There's nothing you've done. There's nothing you could have done to prevent it. I remember him giving me these lists of famous people and sport champions who've been living with with diabetes since a young age. And I remember him telling me that everything will be okay. I remember that it was a difficult night, but we're just watching him, and he's sleeping, and he looked so peaceful. That's it. So the next morning, we headed out to the medical complex. They did a blood test, which was the most difficult thing, you know, having to pin down at two years old. And now, in hindsight, I remember thinking that the education we had was just, you live in shock. You go in and shock, you live in shock, and you just think you'll go back home and you'll figure it out, but you just don't figure it out. And I thought that it was just specific to this hospital. Mind you, it's a good hospital. The staff is great. They were very like reassuring through listening to your podcast and everything it happens to be, I recognize that it's a universal thing going in and leaving in shock. Yeah. We went back home with an with Novo rapid Atlantis and tester strips, and they gave me a list of fixed doses, like before breakfast, give him one unit before lunch, give him one unit and Lantis. They started us on Lantus with two units. The next day, he woke up with a blood sugar of 40. And then these 15 minutes, 15 carbs. Thing we we saw that his blood sugar was 2.2 I think so, almost 40. Yeah, we gave him the the juice. We checked after 15 minutes, he was still below 70. Actually, they told us to treat below 90 at that point. So he was still below 90. We gave him another juice box and toast. So I don't, I haven't, I don't even know where his blood sugar ended up after that, maybe in the six hundreds.

Scott Benner 14:15
Yeah, yeah, right. You were like, oh, we'll fix this. You don't know what you're doing. What did you call the information? You call it messy, or how did you put it messy? Messy? Yeah, that's a really descriptive way of it's chaotic, right? Yeah, yeah,

Fatima 14:30
like, yeah, just check before and check after. But do not fix a high blood sugar. You just have to wait. It's dangerous, okay, but you're telling me that a high blood sugar is dangerous as well. So why can't I fix a high blood sugar 15 carbs? Like, I don't know. I remember. I remember leaving the hospital much more confused than walking in. There is nothing we can do. We'll just have to deal with it. Just

Scott Benner 14:55
deal with it. Let me ask you a question, like, Yeah, but rain is like. About the size of New York City, right?

Fatima 15:01
I have no idea. Let's make a check.

Scott Benner 15:03
Well, I'll look it up. But like, I mean, you're about it's one of the smallest countries on the planet. Am I wrong? 186.5 kilo a square kilometer. Okay, all right, yeah, that's going to be very close to New York very small, right? Very small. Yeah. And is this the only hospital, or is it just the one that you were sent to?

Fatima 15:21
There are many hosts, like, there are many hospitals, but this is the, the main medic. Like, we do have

Scott Benner 15:28
kind of, like, satellites. This is the main one. And then there's satellites. Yeah,

Fatima 15:31
we like, we do we have, like, like, we're in the UK. They have any NHS, like, the GPS, they're all around. We do have these small hospitals that will go and they are, there are government, government hospitals. You pay nothing, you get all the treatments for nothing. But then there is this main hospital, which is also a governmental hospital, okay, okay, so and off my trip, I paid zero for everything you insulin actually in in Bahrain is free. Wow,

Scott Benner 16:00
that's pretty awesome. Yeah, yeah. I want to go back to how, like, how messy it often I've been jumping around. No, no, you're not. Are you worried you're jumping around? I don't know. You're fantastic. You're doing great. Don't worry about it. All right, thanks. Even, like, did you grow up speaking English? Actually,

Fatima 16:17
I do not think that. I do not think that you'll come in here and you'll find anyone who does not speak English as a second language.

Scott Benner 16:26
Yeah. I mean, you're not reaching for words or anything like, I usually, no, it comes easy. Yeah, it's interesting. Like, I can hear it sometimes when you're when you're speaking with people who natively spoke another language into adulthood, and they'll get to a word and they can't find the word in English, you know, but I haven't noticed that once with you. Oh, thank you. Thank you. My question is, is that, like, you don't have any background in type one, there's nobody with it in your family, you haven't lived through it before? And the doctors, no, nothing, yeah, when they give you the information, they give you, right? And, yes, like, I know, they tell you, like, treat under a number, but they tell you, why do they tell you? What happens if it gets too low? Do you have glucagon on the first day? Yeah,

Fatima 17:06
they handed out to glucagon. They never similar to the to the States, from what I hear from your podcast, they never showed us how to use it. Just gave it to you. Yeah, just gave it. And they told me that the they told us that the instructions are on the box. And I do remember that the nurse practitioner was like, you know, very motherly. And I appreciate that from her. I remember then there was the nurse practitioner telling me that you will never end up using it, that in all of her terms there, she never heard about any kid who had a seizure, except for kids with with divorced parents? She's like, okay, nothing can happen now, for my relationship,

Scott Benner 17:51
your husband's like, well, now this is easy. Straight for me, she's never leaving. And

Fatima 17:57
I mean, I mean, what an odd thing to say. Yeah, it was like just to stick together. If you don't want this kid to get a seizure, you need to stick together. That's

Scott Benner 18:07
interesting. I message with this is gonna set. This gonna sound like a strange sentence, but I have a messaging relationship with a number of mothers from the Gulf region, like, do we call it? What do we call it now? Because when I was growing up, it was, they called it the Persian Gulf. Is it still that no Arabian now we call it the Arabian, Arabian Gulf. Okay, okay. And so from a number of different like, countries, I swear to you, like, I a lot of moms message me usually on Instagram, by the way, and I'm wondering how you guys are all finding those podcasts. Like, how was that happening? We went back

Fatima 18:39
home on during and my husband started research mode. Was talking to people and just just like searching for type one diabetes account on Instagram and around the countries, around pain, and we found a girl, like a mom. She's a type, she's a type one mom to a girl in Qatar, okay, which is like four hours drive, 14 minutes, maybe air, air trip. And she told us about you guys, so that's the power of social media. Yeah, wow, it's amazing. Yeah. And, and because of her, we knew that there is something called Omnipod. We knew that there's something called the Dexcom. We knew that fixed doses is not the way to go. You know, you just, when you go back home, actually, and start you feel that this is not working, but you just need someone to reaffirm that whatever is in your head is actually true, yeah, and that you're not just imagining that things are not working out. After I settled down, I also started searching, you know, like just going to these different type one accounts and in the region or in the country, and talking whoever is following them, looking for people. I know, like looking for people, for common friends. Yeah, so

Scott Benner 19:54
somebody like, when you see something happen, to be able to say that made sense. I had that feeling too. It's so comforting, right to hear somebody else have the same thought, right? Absolutely,

Fatima 20:05
I got to know to one of the girls I know about like I was not close friends with by then. She was type one, since she was since, since she was 11. And she's my she's my age, so I am 34 currently, and so, and she grew up with it technically. So I messaged her, and she felt like, I mean, all of these feelings get I think that it rushed back to her, especially that my son was very, very young, and she gave me the number of a type one dad like, also in brain, and he, she told me to speak to him. He's He's looping. He's doing great. His son's a 1c is in the fives. So we spoke to him. And I think this was the real turning point in our in our in our journey. Like my husband met with him, this guy like, we've never seen him, like in any other circumstances, our paths would never cross. He told us, like, did you notice that he was going high sometimes, like, 12 hours after his Lantis, and then going to and then dropping low, and all of these we've noticed, right? Yeah. We were like, Yeah, we keep on increasing lunch dose because we have no idea why is he's going Kai after lunch, this guy, he handed he handed us out. What's that called? The other long acting new one. Oh. Traceba, okay. Traceeba, and our line flattened.

Scott Benner 21:42
Mm, hmm, yeah, because you were actually getting coverage for basal lines throughout the whole day. Yes, yep, Lantus

Fatima 21:47
was like, it just did not work for us.

Scott Benner 21:52
Well, it wasn't lasting 24 hours, certainly. No,

Fatima 21:54
yeah, definitely. And no one told you about splitting the doughs. Or we were just either covering now, in hindsight, are they're covering the high with those for lunch, wood covering, sorry, the shortage of basal with Bolus for lunch and then feeding the lows during the night. Have

Scott Benner 22:12
I ever you listened to a lot of the podcasts? So I can ask you this, yes, have I ever discussed how I figured out that those older basal insulins didn't last 24 hours. Have I ever shared that? That's how

Fatima 22:23
I remember? No, not that you remember. Can you share? I tripped

Scott Benner 22:27
my way online onto a message board that was being used by pharma employees. Okay? And they were talking to each other. And this is, I mean, this is a long time ago, like security on the internet isn't like, you know, it's not like it is now. And I got into the board, and there were sales people in there, and they were talking about how bad they feel telling people that the drug lasts for 24 hours when they know it doesn't. Oh, my God, that's how I figured it out. And so I thought, I thought, okay, so like, How long am I seeing it last? And, you know, and then I for me. And in fairness, Arden was using lever mirror, it was about 18 hours. And so I just thought, well, I can't, like, I don't want to shoot it every 18 hours, because it kind of puts you like, it's It messes you up on the clock, you know, like, it's not there. So I thought, I'll try splitting it like, I'll do half now and half 12 hours from now, like, so when she gets up before she goes to bed, and, man, that works so well. And now we talk about splitting insulin, like, I think there's an episode about it, yeah, yeah. But that's how I figured it out. I just tripped across, like, like, massive Googling, until I found I guess I googled the right words, and it led me into this forum that they thought was private, that it wasn't. Yeah. So

Fatima 23:38
just imagine whoever did not have the luxury or the wits to Google these things, and they would be, they would have been in a loop.

Scott Benner 23:46
Wow. And it happens to so many people, because you put the basal in, and once it's in you, that you forget about it that's in there, and in your mind it's working, right? Yes, absolutely. And then it makes you mental trying to figure out, like, what's happening every day at this certain time, you know? And then, trust

Fatima 23:59
me, I was going insane, like, I think what to broke the relationship between me and this nurse practitioner. We were giving him the breakfast dose as I was, because, obviously I had to pull him out of nursery until his numbers are stabilized. We are still two weeks, or I think, three weeks into diagnosis, still still missing. No one's sleeping. Everyone's crazy. But we had him on the FreeStyle Libre, which was the only CGM available for purchase in Bahrain the next day, like the next day after diagno that, after we got him out of the hospital, we had him on FreeStyle Libre. That's all of my husband's research. Okay, I was not mentally there still, are

Scott Benner 24:43
you in a position where financially, this is doable for you? Or could anybody do this in Bahrain?

Fatima 24:48
Yes, fortunately, we are. We are fortunate. Not everybody could have done this in Bahrain. I know that the government gives me the tronics, but there's a long wait. List, a long

Scott Benner 25:00
waiting list for a long like it can go for years. I say, I say,

Fatima 25:05
yeah, the next day we had him on FreeStyle Libre, it's even it's, I think was one, the one that you have to scan, yeah, there was no way I was sending him to nursery when he doesn't know how he feels. And just relying on, relying on someone to send me the to send me his his readings every half an hour. Sure,

Scott Benner 25:26
when you don't know what you're doing, you can't even imagine. Like, how do I even explain it? I don't understand it. How am I gonna explain it to someone else to do it exactly, and then they don't love him the way I do. So, you know, right? Yeah, I

Fatima 25:39
know they're busy with other eight kids, or 10 kids, yeah, right,

Scott Benner 25:42
kids, I'd be willing to ignore, to help my own kid, not but

Unknown Speaker 25:45
be willing to kill to

Scott Benner 25:50
Exactly, right? So no, I take your point. I wouldn't have sent him either, probably for

Fatima 25:54
two weeks. We we stayed. I was just also just changed, a change of job. So I was new in my, in my in my current job, so I took a one week leave. My husband took more when we started going back to work. And I'm I this, this is the story of the beginning of the end of my relationship with the hospital. I used to drop him off at my mother's in the morning. I would give him his breakfast dose like we were still on pens. My mom would would just feed him, alright, and then, obviously, back then, it was horrible, because one unit would maybe add up to, I don't know, 3040, carbs for him, and we'd be chasing him around with food, because 30 carbs is a lot for a two years old. Yeah, over lunch, he was always going high, like breakfast. It was okay. It was it made sense. Lunch, it was always, always going high and and he would be high for hours, and then they told us not to fix that high. So I remember once my dad had him run around in the neighborhood just to bring his blood sugar down, and he was still not I think he was shooting up to the four hundreds, five hundreds, and he was just stuck there. Yeah, at that point, we had to call in twice every week to the hospital and just give them our readings. So they were seeing that our lunch readings were not okay, so they told us to increase that fixed dose from two units to four units.

Scott Benner 27:26
Okay, okay, I'm following so double

Fatima 27:29
a disclaimer at this point today, he got 1.8 unit for his lunch. Okay, that's how, how high they made us, right? They made us go too

Scott Benner 27:40
much or not enough? Oh, my, he dropped

Fatima 27:43
way too much. Okay, like for hours, and it was the first week of both of us being at work and being far and there was like panic.

Scott Benner 27:53
How old are your parents? By the way, early 60s, okay? And they No, they didn't raise kids with health issues. No,

Fatima 28:00
no, okay, yeah, it was panic juice box after juice box. And you know how that ended up? That was the end of my relationship with them. They never heard from me again. They called me once in a while to tell me, Oh, they there's this event for type one kids. I would like to take my son, but it's always during my working hours, so just never worked out. But yeah, no advice. Yeah, fan of

Scott Benner 28:26
me. He was having highs, and they doubled his insulin. Just

Fatima 28:29
horrible. And now, you know, Scott in hand side. Now thinking about why he was going high one, it was at the Lantus two. You know when they tell you that when you're giving, when you're giving insulin with through the pen, you should keep the pen a little like few seconds more. Yeah, hold it in there for a moment. Yeah, just my mom was too scared that she's hurting him. She was pulling it out. Oh,

Scott Benner 28:56
she might have also been pulling it out before she was not injecting it.

Fatima 28:59
Yeah, maybe, absolutely, um, now looking back, that's a huge part of

Scott Benner 29:04
what was happening. I see, Oh, she got nervous. She got nervous. He is her,

Fatima 29:08
her only grandchild at this point, so, and she loves him dearly. And you know how grandkids are with their grandparents, sure he knows how to tick her boxes and to switch on her switches. So, yeah, so she didn't want to do on, to do anything to hurt him, and she was they were just like, I think they were not asleep. My My parents were not sleeping as much as we were not sleeping just thinking about him. Yeah,

Scott Benner 29:34
no, I understand, yeah. It's difficult for everybody, not just, not just for the kid, not just for the family for the parents, everybody involved, like I saw it, messed with everybody who cared about Arden, like you said, out to grandparents and cousins and everything. And everybody had a different reaction to it. Absolutely,

Fatima 29:51
yeah, absolutely around this point was we started listening to you. My husband was talking about you, like this. I'm kind of like magician. He's saying that there is no restriction. He's like, more insulin, more insulin, and then look like it's just like we knew that this is what we wanted our kid to grow up with no restrictions. This condition should not hold him down. And you know, when you give birth to a kid who you see that he's a smart and social and intelligent and he knows how how to like present himself. You have great hopes for him, sure, and it's always my kid, he's going to do great. I think all parents are entitled to feel like that about their kids,

Scott Benner 30:41
yeah, and to work towards it right off, absolutely, absolutely. Then

Fatima 30:45
I started listening. I started speaking to these different individuals with type one accounts around in the region. I started feeling that it's the heart, but it is achievable. We went back to our indo at that point, we people were advising us to shop around for in those, I didn't really find a lot of child in those in our country. I can think about two, one that we already saw Okay, and we were following up with he was, he was such a, like, a nice, a nice guy. You know

Scott Benner 31:19
how it is, yeah. Well, yeah, that's people's first thought is like, well, your endo sucks. Go find another one. Like, I don't know what tells you the next one's gonna know what they're doing either. So, oh,

Fatima 31:29
the next one was, was a horrible experience, Scott. Someone told us about another indo, and we, we went to her. Obviously, you wait for hours, and then you go in and you're tired, and by then, we already did our research. We know that we wanted the omnipot Five. We know that we wanted the Dexcom that these fixed doses are not working with us. We wanted to start on a carb ratio. And we were, like so optimistic. Everybody was talking like, saying good things about her, and we told her that you wanted to put him on the omnipot five, and that we will, we will find ways to get it. It's fine. We can find ways to get it. But what do you like? We asked her, What do you think? And she was like, very judgmental. Like she turned she was like, You do not have your child the best interest at art the Omnipod is not nearly as good as the Metatronic 780 Okay, I have never even researched the Metatronic 780 with all due respect, but I do not See my very active child having tubank on him. And it's a huge it's the size is a huge compared to his

Scott Benner 32:47
age. If it's important for you, right about the size and the tubing, then it's important. But the other thing is that, listen, whether you chose Medtronic or tandem or omnipot or, you know, they're they all work really well. Like, yeah, yeah. How would that be you not having their best interest at heart? I

Fatima 33:04
don't know. Okay, I don't know. Like she was really, really pushing wood for the Metatronic. And you do not tell a parent that they do not have the their child's best interest at heart. It's just, it's just a

Scott Benner 33:18
no go. I have to tell you, I find it oddly comforting that, that there are terrible people in all countries. I really felt good about that. I was like, Oh, so it's not just here, it's everybody. You can you find

Fatima 33:32
someone, somewhere and and everywhere.

Scott Benner 33:36
No, it just, it really is, like a real I mean, you can think, Oh, it's here, or, you know, it's terrible where I am. Or, you know, like, you know, other places suck. But, like, the truth is, is that people are people, and communicating, communication skills lack all over the world, you know, I mean, like, I'm sure that person thought they were saying something valuable to you, but look how it came out. Yeah,

Fatima 33:57
and, and then she followed it up with asking me if I was staying with him at home. And I was like, No, my husband is taking over this week. I went back to work, and she just gave me that look, that, damn you working moms. Oh,

Scott Benner 34:13
is that now? Is that cultural? No, not at all. Okay, all right

Fatima 34:17
at all, yeah at all. When we were like, No, we still want the Omnipod five just please write us a prescription. So she was like, anyways, I can't write to a prescription. There is no representative, and if anything happens, then no one can help you. My husband was telling her, if anything happens, we'll just throw out the pod. Yeah,

Scott Benner 34:39
right. Oh. She was worried that if you got a bad pod, you couldn't get a replacement. I

Fatima 34:45
don't, you know, with the with the Metatronic, if anything happens, they have to, like, replace the entire thing.

Scott Benner 34:51
Medtronic is represented in Bahrain, where the Omnipod isn't it? Well, listen, if you have the money to go buy them in cash, you have the money to buy a couple of extra ones, right? Yes, yeah, yeah.

Fatima 35:00
And we did not even this was not a concern of ours. How come is it a concern? First of for her, yeah, when she saw that, we really did our homework that things are not going her way. And, oh, by the way she was looking, she was trying to arrange his numbers so he will be stable at eight millimoles, which is 144 which is too high, like, I don't want him

Scott Benner 35:25
to be stuck. You had stability at a lower level, and she wanted you to move it up. Yeah, with the

Fatima 35:30
trace Bo, we did the trace by did wonders. You

Scott Benner 35:33
got the diagnosis with limited information. Got sent home, not really understanding anything. Gave you gluten, didn't tell you when to use it or what it was for. You came in with a lower stable, a 1c they tried to raise it. You asked for a pump. They said no, but you just having the you're just having the classic type one experience.

Fatima 35:52
Yeah. I mean, I mean, by then, we were like, I think a month or so into diagnosis, when I saw her, we're still lost. Yeah, no, I'm sure still, like, lost, like, I couldn't eat. I just feel that I couldn't keep my head above water. I was, I was devastated, and to hear her saying that, and then, like, when she saw that there's no like, these are like notes and no go with these, with these guys. And she turned to her nurse, a practitioner, and she told her to just ask the next patient to come in. Oh, they just kind of disrespectful. So disrespectful. It's like, I left. And I was like, I'm never going to see her.

Scott Benner 36:32
These people are leaving now, yeah. Oh, you got you got ushered out the door. How about that? Yeah,

Fatima 36:39
yeah, like, Oh, my God, I can never get over her. Let

Scott Benner 36:44
me ask you, is it fair? Like I usually think of it as you know people you know, go looking for information, find the podcast and find it valuable, but you almost got forced into my arms. Oh,

Fatima 36:56
they, they were pushing, pushing me into your arms. Yeah, yeah.

Scott Benner 37:00
Well, I have to thank all the bad doctors out there. Appreciate it. Yeah.

Fatima 37:05
So we went back to the also, the first end row, and we asked him about the Omnipod. He was like, I can write you the prescription for the that he's more open minded to like, what do you want to do? But he also lacked. I feel he didn't know that the omnipot Five, like the closed loop system, the algorithm was there. He just knew about omnipot Dash. Okay, at that point, that was January 2021 I'm not sure when the omnipot five came, but at that point, I felt that he didn't know about the Omnipod five. He just thought that we're talking about the omnipot Dash. He was like, I could write to the prescription you choose. He still advised us to go with the with the 780 saying that the and I quote, it's like comparing an iPhone to an ocher. That's

Scott Benner 37:55
what he told you. Yes, I don't know omnipot. I'm looking here. Omnipod five was officially released the United States in early 2022

Fatima 38:04
and, oh, sorry, yeah, our dining room says was 2022 not 2021

Scott Benner 38:09
Yeah. I just, I was getting, I know you're telling the story, as it happened. I'm like, why is that not lining up? But okay, no, yeah, by the way, I hear really great things about the 780 G from a lot of people overseas. I do

Fatima 38:20
not have an issue with the 780 G. My issue was the size and the tubank. You know, you have to, I'm twice. I'm trying to, like, have him have the most normal experience and just not to feel like the teen he's carrying things around. You

Scott Benner 38:37
had a preference, that's all, yeah,

Fatima 38:39
I had a preference. And he's so tight, he was tiny at that point, like the 780 felt like, like a massive device for such a small little kid. Yeah, yeah, for such a small little kid, this is

Scott Benner 38:52
years ago. Now, actually, all the people working in Omnipod won't even know if this is true, because they're probably all gone by now, but years and years ago, they used to have a photo of Arden wearing an Omnipod on her arm, up at up in the office to remind them that that the pod wasn't as small as they thought it was. Yeah, because it would look so big on her, and they've they've shrunk it down since then. But the other was a picture of it on her because, you know, even that looked big, and now they've made it smaller since then. Listen, there are plenty of people running around with using, you know, two pumps that like them. But again, if it's, if it's why,

Fatima 39:27
I hear good things about the T slim, I hear good things about the seven ATG, right? I have, it's

Scott Benner 39:33
just a preference. Yeah, yeah, exactly. And I don't, it's funny, because you went from a doctor who just said, I don't care what you want, no to one who sounded like they just didn't know. And they were like, Hey, do whatever you want. It's fine. I'll write it. I write it,

Fatima 39:43
yeah, like, like, because he saw that we're doing our research, and this is something I appreciate about him, especially with with the with diabetes, it's really an ever revolving education, ever evolving education, yeah, for sure, and if you do not, if the doctor do not know. Everything, then maybe listen to your patients who are living with it. Yeah,

Scott Benner 40:03
Jesus, yeah. I'm gonna interject here for a second and tell people that if you're ever upset that I bleep out the cursing on the podcast. I do it for, like, a specific reason, and I'm talking to you today. I feel very good about it. The reason is, is that Apple podcast is the way that most people around the world get podcasts. If I curse in the podcast and make this an explicit podcast, I immediately lose distribution in China, India, Brunei, Nepal, South Korea, Belarus, Uzbekistan and Libya, like it just goes away. And then there are like 27 or so other countries, including Bahrain, where you can opt in for explicit content, but you would need to know how to do that. So if you if I was an explicit show, and like, you know, a cutter, Bahrain, Saudi Arabia, United Arab Emirates, Singapore, Lebanon, Libya, like a lot of places, if you go into your apple podcast app in those countries and search type one diabetes, and my show is labeled as explicit, it won't even come up like you won't know it exists. So the reason I make the show clean is so that people in all these other countries can can get to it. Yeah,

Fatima 41:20
am I mistaken? The paid podcast you can hear it on, yeah,

Scott Benner 41:25
but I don't even tell I don't even tell people about that, because it's there for the people I already

Fatima 41:29
paid. Oh, okay, thank you. This is my way. This is my way of paying it forward. I appreciate that. But

Scott Benner 41:35
yeah, you can through Apple podcasts, you can pay for the show, and what that gets you right now is the Pro Tip series without

Fatima 41:43
every day like, right? Yeah, before you can get to hear it before,

Scott Benner 41:47
yep. And whatever show comes out today, the people who paid got it yesterday. They're ahead by a day, so they always have kind of more content available to them if they want. And every once in a while, when I'm able to do it, I'll throw up like a, like an episode that's not bleeped out. The problem there is, it's an, actually, an extra editing expense, yeah, well, it's an expense, you know, the guy's gotta, he's gotta edit the show once for sound, and then he's gotta go back and edit it again to take and then he creates two files, and it's just more work for him, and then that's more hours he's working for me, and more money I have to pay him, and so it's difficult, but there's a fair amount of people who pay to listen to the show. It's very nice. I appreciate it. Pays for my car insurance. So thank you very much. You deserve it. You deserve it. You're very nice. Thank you. What's your husband's background? Like, I'm interested in how he went out researching. Like, what does he do for a living. He

Fatima 42:40
works in one of our like, not, I think that oil refinery, okay, company.

Scott Benner 42:47
Is he an engineer, or does he do the business?

Fatima 42:49
No, he's, he's, he's, he has a desk job. Okay, nice.

Scott Benner 42:53
And he just thought, I can go find out and learn more about this. Social

Fatima 42:57
media is a strong, a strong, strong factor in our in our journey. Wow, because of you, and thanks to you, we also got to know about Integrated Diabetes. Oh, and yeah, and we, we worked closely with Tavia vital, and this is a shout out for her. She's amazing, amazing person. We worked very closely. We did three months retainer, and then we did a one year retainer. And I mean, we wouldn't have known anything without her. The amazing thing about her is that she's a type one herself. She can she understand you as a parent, but she can tell you, how does it feel if a person goes low, if a person goes high, all of that. So, so I'm really, really thankful for her. I

Scott Benner 43:45
saw Tavia at dinner at touch by type one last month, and we didn't I think I saw her for like five minutes, and I thought, Oh, I'll see her later and talk to her. I never saw her again for the rest of the weekend. She's

Fatima 43:55
an amazing, amazing person. I keep thinking about renewing retainer just to have, like, the comfort of having someone just tell you that you're not going crazy, especially, honestly, like, for a while, we've been doing well, the omnipot five Dexcom really helps. I mean, for the first year, we had omnipot Five on manual, because his needs were were so little. But then when he reached that six units a day, we switched to auto, and for a while we we saw good results, but then things changed. I still do not know what our breakfast and lunches are. Okay our dinner like I was telling you before we started recording. I slept for half an hour yesterday, and I am an exhausted, exhausted person at this point. I feel like you do not see that light at the end of the tunnel. I'm searching for it again, but I'm trying.

Scott Benner 44:47
Yeah, it's an it ebbs and flows. It really, it really does, like it's tough too been.

Fatima 44:51
It's been going on for a month, but I have no sleep.

Scott Benner 44:54
Tell me what's been happening for the last month,

Fatima 44:57
a breakfast and lunch. I can. And you, you just normally, he will eat like similar food throughout the day, like we would be eating something different during the weekends, but during the day, I You should know what his blood sugar would do, because he eats the same food. So for breakfast and dinner, for sorry for black breakfast and lunch, I know what I'm doing. I think his car ratios, like sometimes they go up or down by one by one carb or something based on day or body or whatever. And that's something, and that's something you can anticipate with the Dexcom. And if he's going low, just just, you know that it is an extra, you Bolus a little bit extra, so cover that carbs or whatever. But then for dinner, I feel like his his digestion is just so slow, so slow he would have a piece of a bread and some kind of spread that is not like fatty a chocolate milk that is plain sugar, like none of these healthy protein ones, if we give the full Bolus, he'll go low and then he'll go high, even with carby meals, like I started testing out on carby meals, just to see what's going on, and he would actually go low and then he will go high if I give the full amount. So I was thinking, this looks like a trend of slow digestion and I have to split Wallace, I asked around in the Facebook group who's also I'm very thankful for I had a lot of agreement with me that that digestion is really slow slows down towards the evening, and I noticed him his digestion slowed down around 5:30pm this is when he's just settling And just watching a show and then getting into his pajamas to just get ready for for dinner sleep.

Scott Benner 46:47
Do you think your dinners are? Are more dense in carbs than than Yeah,

Fatima 46:51
they are. They are definitely car beer, and I think because he also keeps asking for the for food, because he just doesn't want to go to bed. Okay.

Scott Benner 46:59
Oh, that's smart. Good for him. Yeah, Mommy. I'm thirsty, I'm hungry, I'm scared, I'm excited, I'm happy. I want to stay up. What do you guys do when I go to bed? You're like, we pass out. None of the things we used to do, yeah, none of the things we used to do, I'll tell you that much, yeah, no, not the

Fatima 47:26
show that I used to watch, I

Scott Benner 47:31
don't know what's happening, or the book I used to read. Yeah, exactly. So

Fatima 47:35
yeah, they are definitely car beer, like I would say that his his breakfast and lunch are normally around the 30 carbs, and then dinner is around 50. I see, I

Scott Benner 47:48
see, yeah, well, I mean, it could be just that you're not noticing any other prop, like any digestion issues. He's not constipated or having belly pain or anything like that. Right now. It's just okay, yeah,

Fatima 47:59
yeah. And, just, it's just a slow Digester. So what I started doing, and for a while, it worked, for a while that I started splitting the dose, like I would give 50% or 60% up front, I would Pre Bolus for five minutes. And by the way, we are on fiasco. Okay, so that helps also with pre policy for his age, and then, like, he'd eat his meal a little bit shy of the two hours Mark, I would be both saying the the rest before I see any kind of trending up. And for a while it worked. But for the last like week, he's going low, like, he's going like, low throughout the night, and I give him a lot of carbs, and nothing seems to be keeping up. So today, tonight, I'll be trying a more conservative insulin to carpe shoes. Still, I still was split Bolus, and I'll give him a little bit extra up front, and then the remaining I'll give him before the two hours mark. But it's just just,

Scott Benner 49:03
I don't know what's the target on the Omnipod five set too. Now, right

Fatima 49:07
now, I have it at 120 Okay? And on overnight, it's 110

Scott Benner 49:11
so you're trying. And what time does that come on? Lower target that

Fatima 49:16
was starting 9pm but yesterday, because I wanted it to pause just to see what I was doing. I kept the 110 target to start at at 12am and did that help? No, it was pausing insulin, and he was still going low. So the it was not budging like

Scott Benner 49:33
so it's coming from significantly before then. Yeah, so what's happening

Fatima 49:37
is, for six hours, I don't know you're getting extra.

Scott Benner 49:41
You're getting I'm tired, you're like, I have no idea what's happening. Please. Someone help me. So, so the meal is taking more insulin where you don't have it spread out correctly over top of the meal. And so when

Fatima 49:55
I bought the 50% up front, he would go, like. From his 80 to one to 120 maximum, and then he'll come down nicely and be stable at around 80. This is the first part of the Bolus. And then, if I don't give the remaining of the carbs, in two hours mark, or before that, he will be shooting to the 300 and he'll be stuck there. So he definitely needs something but,

Scott Benner 50:26
but once you put it in, then four or five hours later, he starts getting low. Yeah,

Fatima 50:30
like yesterday, he started coming low an hour and a half later. So I know for sure his insulin car ratio is just not working for that meal, even though this meal is nothing weird, like, yeah, no, I understand it's been Yeah. Can you try a a more conservative yeah ratio, or maybe, maybe on the second Bolus,

Scott Benner 50:52
on the second Bolus, yeah, I can put in something to stop that rise, but yeah, as minimal as possible, and don't worry about the carbs do more about what you know it's going to need. Does that make sense? You know when,

Fatima 51:05
when? When I keep hearing you say that, like, you know what he needs. I'm still not. I feel like my brain is about carb counting, yeah? Like, sometimes I will look into something, I'll say, yeah, it's more carbs than it really is. But I can never think about it in terms of insulin, unfortunately, not yet. Yeah,

Scott Benner 51:26
because it sounds like the dinner meal that first Bolus you're doing, it's solid, right?

Fatima 51:31
Insulin, oh my, it's amazing, right? And then at some point

Scott Benner 51:35
you need the rest for the maybe it's a fat rise. Maybe it's not the how much fat? No, there's no fat in it. I've

Fatima 51:43
been, I've been testing it on, on carby meals, like, completely, like white bread with, with, like, a, barely any kind of a spread on it, just for taste, these very unhealthy chocolate milk, which are plain sugar. Like, it's 14 carbs, the sugars are 14,

Scott Benner 52:03
yeah, but there's fat and chocolate milk, though, is it? It's whole milk, right?

Fatima 52:06
Yeah? But it's just so small, like, didn't have it, yeah? So it's just, it's, it's pure sugar. Like, if I give him this meal, yeah, in the morning, and I don't give him a solid Pre Bolus, he will be temp to the 250s

Scott Benner 52:22
so here's what I'm thinking like. When you split this meal, you give whatever you give as the first I'm writing this down in front of me. You give whatever you give as your first Bolus, and you have nice stability. And then how long do you wait till the second Bolus?

Fatima 52:34
An hour and 15 minutes, an hour and 40 or five minutes? Okay? And

Scott Benner 52:38
if you don't do that around an hour in that time period, you're going to see a blood sugar that goes up to, what, maybe

Fatima 52:43
to 300 Okay, 80, let's just

Scott Benner 52:47
say 250 for, just for fun, yeah. And before it goes up, is blood sugar's more like in the 80s, it's, it's good, right? Okay, yeah. So how much insulin Are you putting in for the carbs there? And then it doesn't matter, like whatever that number is. And then how much insulin would it take to turn a 250 back into an 80? So say you were trying to correct a 250 Do you know how much insulin that would be to bring it back down to 80?

Fatima 53:14
Correction away? For food, yes, 1.5 units. 1.5 food. Yeah, with food, it might take more. And then,

Scott Benner 53:22
in your situation here, when you're making that second Bolus, you're doing it by carbs. But how much insulin does it end up being?

Fatima 53:29
Yesterday, it took two units, two Okay, 2.5 to actually 2.5 okay. Today, it will do i Today, I will do 1.9

Scott Benner 53:40
I would try the 1.5 and see what happens. I don't know why. Like, I can't imagine why, but like, you're putting in this insulin and you're getting low, but yeah, if you didn't put it in, you'd be around 280 maybe 252 80. So just Bolus for the 250 instead of the carbs, and see what happens. All

Fatima 53:59
right, does that make sense? Yes, I hope twerks. Well,

Scott Benner 54:04
listen, I want to be clear. I don't know if it's gonna work or not, but it's worth a show.

Fatima 54:08
Some things we need to try. Some I know

Scott Benner 54:12
I'll accept an Instagram message of 1.5 worked or didn't work. I'd appreciate knowing. Oh,

Fatima 54:17
but let me go back to a few days ago, yeah. So what I did, I was thinking, I will give him something less by half a unit, all right, so we, I gave the the the half carb, the 50% of the car up front. I Pre Bolus, t8 he was, he was perfect. And then I gave one, I think, around 1.3 units because it was less carbs that meal, it was around 43 carbs, if I remember correctly. So I gave him the 21 carbs, and then I said, Okay, I will Bolus less by five carbs by six. Or five carbs, which comes around 0.5 or something. I forgot what's, what's the but it is, was less by by 0.6 minutes, so I gave the second part he was, he was okay. But then at around three hours, I he was still not coming down to to target. He was still, like, hovering in them, 140s and then, like, slowly, two, and then 50s, and so I was like, Oh, he needs the remaining Okay, so I Bolus, but because it was too late, he still shot up, yeah, yeah, it's too late at that point. Yeah, he's too shot up. You're gonna figure it out.

Scott Benner 55:41
Yeah, there's an amount of insulin there. That's going to work. I would try not being so stuck on what you think the carb count is, and focus more on how much insulin you think it's going to stop it without making it low. Today

Speaker 1 55:53
I am like reverse re engineering my brain to think that the second part needs a weaker insulin to car ratio than the first part.

Scott Benner 56:04
Yeah, right. Well, I mean, that's how it seems. So I think you'll do well, if you like, that's why I chose, like, a unit and a half because, yeah, because you seemed like, well, it could go 252, 8300, but it sounds like it might be a little less. So, I mean, what would it hurt if you did the unit and a half this time? Yes. I mean, let's say it went up to 180 you'd be like, Okay, well, that's better than it. And it does get low later, that'd be better. And you can work off of that then, yeah, absolutely cool, absolutely awesome. What else should we be talking about? Have we missed anything? I just

Speaker 1 56:35
wanted to talk because one thing towards the beginning of his diagnosis. It just hit me so hard. And, you know, I, as we spoke earlier, we had, you have all these dreams and all this love to this human being who's funny and full of life and just he's, he's amazing, and he says the smartest things, and you just, and then just hits you. It's like feels that something is is taking away from your motherhood, like you cannot fully enjoy your child. You're always thinking about him, like I drop him off to nursery, and then the Dexcom window is open on my desk at work, like you're not fully there at any moment in life, and and it just, it just really, really impacted me. And it just, it still continues to impact me. At that point, I had to seek therapy, just somewhere where you can talk and just feel that you're not crazy, like, reassurance that what you're feeling are okay. Like, I felt bad about myself. Think thinking that, why is it my kid and not that kid, or that kid or or someone else that I do not know and I can encourage? Like, I mean, for the first two sessions, it was my therapist just listening and me crying. It was like tears, yeah, or two full sessions, like, I don't remember seeing saying any any proper word. I have no idea how she put together, what I was there for, but it really helped. It made me feel that I'm not crazy, that I have the right to feel that about my kid, and because I feel like that's what my kid, I will find a way to figure it out. So I really, really encourage anyone who's feeling alone, any parent who's or caregiver who's feeling alone, to seek therapy, to just talk about it. Your feelings should be validated. It's okay to feel the way you're feeling. Yeah, doesn't say that you are a horrible human being, actually, in the contrary, it says that you are so in love with this small creature, that the human, human being that you, you're actually touched by what he's going through. And it really helped me, like, find some balance. I still, I still sometimes like feel so angry. It really helped me a lot. And also the the Facebook community, a Scott that you've built, is amazing. I was at a very low point and and I posted something, and this angel, her name is Julie. And I already asked for if it's okay to say her name, to say her name, her, her name is Joy that me, I don't want to say it wrong. Julie killer, K, E, E, L, E, oh

Scott Benner 59:40
sure, you know, she's been in the group for a number of years. She's,

Speaker 1 59:43
I mean, she just asked me to DM her, and she was reviewing all these like graphs. She's someone that I'll probably never meet. She's in the states, different time zones, different countries, different geographies and and different age group. And we were talking. Talking, I think, for all two months, making these little tweaks here and there, and changing settings, and then just talking and validating each other's feelings. She's amazing, like, I cannot even begin to thank her enough, and I think she deserves a shout out here. So thank you for that. I mean, it's one of the most selfish communities I've ever, I've ever came across honestly. I'll stop

Scott Benner 1:00:27
you for one second. You mean selfless, but you said self. Oh yeah, don't be sorry. No, sorry. So Julie, I know her name because she's helping to support a cause that you know is very meaningful. So I see your posts and they pop up in front of me. It's wonderful that you met somebody,

Speaker 1 1:00:44
a wonderful lady, honestly. Yeah, that's awesome, yeah. And maybe you can speak to Omnipod five, or to, sorry to Omnipod and Dexcom, so they can open up a small shop in Bahrain, or speak to one to or do one of the pharmacies, it's really a hassle getting them. I

Scott Benner 1:01:02
was gonna say, What are you doing? You having somebody in America buy them and ship them to you. So

Speaker 1 1:01:06
we ship omnipot Five from America. We found them on a website, but Dexcom it, we can buy it from Saudi Arabia, which is like a drive away. There's a causeway linking the two countries. They do not ship to Bahrain. They do not have a physical location where you can go and grab things. It's just like a representative that ships your order to a location in Saudi Arabia. So my husband's friend from college, he lives there, and we ship it to his address, and then we just find ways to get it from him, or he get it to us. So it's really a hassle. Okay,

Scott Benner 1:01:46
yeah, you are an island. That's I'm worried about that, right? Yeah, yes, yes, we are an island. How far is Saudi Arabia like by car?

Speaker 1 1:01:54
Uh, depending. You can get there in, I don't know, 30 minutes. Okay,

Scott Benner 1:01:58
and is that all over the causeway.

Unknown Speaker 1:02:02
Have you ever driven it? I've been.

Scott Benner 1:02:05
Am I driving over water on a bridge the whole way? Yes, yes, yes, awesome. Yes, technology, yeah,

Speaker 1 1:02:11
I want to invite you here, but you're not going to Canada, so I don't think we'll be here. Listen,

Scott Benner 1:02:16
I'll go anywhere. I'm invited if there's a nice group and we can talk. Oh, I just, I'd make Canada. It's cold, you know what? I mean, at least you guys have nice weather. Oh, no,

Unknown Speaker 1:02:25
no, no. Too hot,

Scott Benner 1:02:29
too humid. Oh, it's humid there. That's upset, horribly

Speaker 1 1:02:32
humid, 90% you have to come, you know? You have to come in in February or January. The weather is amazing. You can go to the beach in January and February and enjoy the weather, yeah. How long

Scott Benner 1:02:45
of a flight are we looking at? Last

Speaker 1 1:02:46
time I was in the States, it took me 19 hours. Oh, yeah, that seems like

Scott Benner 1:02:51
something I'm not going to do, yeah,

Speaker 1 1:02:54
I told you. But I also want to say that type one tend to find them each other. So we found, we found people around here with kids with type one, or they themselves are type one. And one of my very close friends now very, very close friends this type one, and she's du pink, and she's, she's an amazing human, human. It's good to have that community. It's good to normalize having these machines. My son is not ashamed of his machines. He show them around and tell people that these are his heroes. And he's into swimming class. He'll start, uh, he'll start horse riding soon. I think maybe, and I feel bad saying it, maybe without the type one, I wouldn't have been so focused and so like involved that he needs to be, like involved in these kinds of sports, and he needs to have targets and standards for himself. So

Scott Benner 1:03:58
are you saying that you think that you would have just expected those things to come, but now that type one's here. You want him to be. Yes, have those things so badly. You're you're pushing them forward.

Speaker 1 1:04:09
Okay, I'm not putting pressure, but I'm more, more like seeking them, like right here and there, and it makes you feel bad, but it's it is the way it is, and not giving up on him. Now, will I, hope I pray, that he will not give up on himself in the future?

Scott Benner 1:04:32
Okay? Yeah, I imagine he won't. He sounds like he's got great support. Can I ask you a question you talked about being tired a lot? Like, is it just recently, or is it been spread out over time, just

Speaker 1 1:04:41
recently, like I actually, because I've been here listening to your podcast, I think with the lack of sleep and everything, I haven't been losing weight, as I usually do. I have been tired, like I feel because I didn't I don't sleep. I feel that can't focus. So I did, I did test My TSA. And came back normal. I think I was just really sleep deprived and very low on vitamin D.

Scott Benner 1:05:05
No, I'm saying like, you really have to. Can get ahead of you in a tough way, and then you won't. You don't notice it for years, you know. So I just wanted you to go to the doctor and get a physical.

Speaker 1 1:05:16
Or I did. I got a blood test and checked my TSH. TSH. It came back. I actually expected thyroid because I just feeling this needs, like I might have been facing that's why I'm always tired. But my thyroid came back normal, like it was below

Scott Benner 1:05:34
two, good, good. That's good, yeah,

Speaker 1 1:05:36
and, but it was, I'm just really sleep deprived.

Scott Benner 1:05:40
Yeah, no, it's tough. It really is tough. And you're saying, Have you, I'm sorry, have you gained weight since he's been diagnosed,

Speaker 1 1:05:46
not gained weight, but I've been trying to lose weight. And that's not just happening, not happening. Yeah,

Scott Benner 1:05:53
I don't know if they the glps make it to Bahrain, but you know

Speaker 1 1:05:56
they are. They are everybody here is about losing weight. I know,

Scott Benner 1:06:01
right? Everybody, all of a sudden is like, look, is like, look how thin. Oh yeah, no, I hear you. Well, I wish you luck. I hope you find a way. Because I mean to your so much, yeah. I mean, listen, between 90% humidity and a kid with diabetes and not having sleep, I don't know where you're going to exercise, you know?

Speaker 1 1:06:15
Yeah, it's all. Everything is inside. It can't walk around. Yeah, being outside is not good. No, only for two months there. Oh my gosh. It's just, it's just too

Scott Benner 1:06:30
hot. Too hot. I got you culturally, like, what's the food like? Is that part of your issue? Do you think, or do you don't like,

Speaker 1 1:06:38
I think, like generally, we eat good food, like carby meals, yes, but there is always protein. Our food has, like the home cooked meals. Has never been a lot of oil. We switch to olive oils. Ever since his diagnosis, the food that we eat on daily basis. Never causes issues like I hear all of these people complaining about rice, and he eats rice every single day and does not it's very easy on his blood sugar.

Scott Benner 1:07:10
Surprisingly, what kind of rice is it? Just the white best fit your rice, just what? Oh, but it's basmati. Yes. Oh, so I was, I would have told you that, like, we had to switch Arden to basmati rice. It does not hit the same way, but regular white rice, like that you would get here, or brown rice, or even, like, anything like that, that hits harder. But basmati, for some reason, just does not hit as hard. But why isn't it like all rice? Or is it? I can't begin to, I mean, I can try to find out. So weird, yeah, it's probably the glycemic index is probably just lower on it. But I'm wondering what's gonna happen. Oh, basta. Rice has a lower glycemic index compared to many other types of rice, which is why it tends to have lesser impacts on blood sugar levels. You just got lucky. You're just, you're eating the right kind of rice to begin with. Yeah, we got lucky. Yeah, yeah, trust me, if you tried the other one, you'd be like, I don't. Bryce is horrible.

Speaker 1 1:08:06
I mean, he started, he doesn't like any kind of pasta, except for a spaghetti. And I can see the difference. It hits very hard, yeah. No kidding, we have to Pre Bolus way ahead. Do you

Scott Benner 1:08:18
know about cooking pasta then cooling it and reheating it, yeah, but

Speaker 1 1:08:22
you know, my mother thinks this is not the way to do it, and he should eat everything fresh out of the oven. And who am I to say otherwise? Well,

Scott Benner 1:08:31
you're his mom. You can say, Listen, basmati rice contains a higher proportion of amylose, a type of starch that is digested more slowly, this leads to a more gradual release of glucose into the bloodstream, and brown basmati rice has more fiber than white rice, so there you go. Now we know more about that than we know. Well, I can't thank you enough for coming on the show like this was really terrific.

Speaker 1 1:08:55
My pleasure, my pleasure. You're as Yeah, it's like talking to someone famous, who's

Scott Benner 1:09:01
the most famous person in Bahrain? Why are you laughing? Do you not have like singers or like we? Do? We do? I don't know who's your favorite who's your favorite singer. You're like Bruce Springsteen. No, I just, I just said the most American thing I could think of. That's all. I can't

Speaker 1 1:09:24
even think about name. Oh, they're the singer I like. It's, yeah, I don't know if you'd find his. It's Arabic songs. So,

Scott Benner 1:09:35
okay, you're not gonna tell me. Are you embarrassed? His

Unknown Speaker 1:09:37
name is, his name is Khalid

Scott Benner 1:09:41
Sheik. Let me see he's not coming up on my list of most famous Bahrain singers. Hold on a second. Yeah, these guys do not look like Bruce Springsteen.

Speaker 1 1:09:50
Okay, so, so, oh, wait, Khalid, are you getting all

Scott Benner 1:09:54
right? Yeah. So I have, I mean, I'm gonna mispronounce everybody's name, right? That's okay. I'll make it sound ha. Al Turk,

Speaker 1 1:10:00
Hannah Turk. She's a child. No, yeah, that's not my age.

Scott Benner 1:10:05
Khalid, Al sh man,

Speaker 1 1:10:08
okay, yeah, okay,

Scott Benner 1:10:11
all right. Nasra, A S S, a, l, a N, A, S, R, I

Speaker 1 1:10:18
No, oh yeah, she's a Syrian brain. She has, do I, I think she has the nationality with she's not originally from here. Yeah, she's, she's very good. She's very good as well.

Scott Benner 1:10:28
Then there's a couple of girls that are, one named like Madonna. There's Alam, a, H, L, A, M, nom,

Speaker 1 1:10:33
yeah, yeah. She's, she's well known. Okay, she's a very good thinker as well.

Scott Benner 1:10:38
Hind h, i n, d, yeah. And, okay, these are the and if I listen to their music, I'm not gonna, it's not gonna be American. Is there any American music that makes it

Speaker 1 1:10:47
to you? Oh, yeah, all American music that makes us what's your

Scott Benner 1:10:51
favorite kind of music? Then that comes from here, uh, American

Speaker 1 1:10:54
music. Oh, I'm not sure if these are American people, the American band. But I like, I like, Cold Play, Cold Play. Okay, yeah. Who else we just had, actually, a couple of, I'll tell you who was performing in a National Theater, just or will be performing, let me tell you, cold

Scott Benner 1:11:17
place from, from England, right from London, yeah, I think so.

Speaker 1 1:11:21
We have Calvin Harris performing soon, okay, not sure where he's from. We have Lionel

Scott Benner 1:11:31
Richie. Lionel Richie is coming to Bahrain. He's got to be 1000 years old now. Yeah, he is. He looks very old. He's 75

Speaker 1 1:11:43
Wow. And then we do have, oh, Sia. Is, is Australian, right? Sia? Yeah. I like Sia. I like Sia. She's very good. Who do we have also coming soon? Oh, we, actually, we have Eminem performing soon.

Scott Benner 1:11:59
No kidding. What are you That's awesome. He's got new music out now. Will you go? Will you go to any of this? Or no, yeah, Eminem

Speaker 1 1:12:06
is not my speed scene. Yeah. I would go to Coldplay. I would go to who else were they having? Well, I don't know.

Scott Benner 1:12:17
It sounds like you have an opportunity to hear a 75 year old Lionel Richie sing a Commodore song. So we

Speaker 1 1:12:23
had Kevin Hart come before, like the comedian, I went, Oh, he did

Scott Benner 1:12:27
his comedy. Is that? Is that a big venue that they they performed,

Speaker 1 1:12:31
a huge venue, him and the south, south african guy, what was his name? He's Trevor funny.

Scott Benner 1:12:39
Trevor, Trevor Noah, yeah, he is very he's very good.

Speaker 1 1:12:44
He's He's very funny. I went for Trevor Noah, honestly, he's one

Scott Benner 1:12:49
of those, by the way, here, I bet you a lot of people don't know that he's a stand up in America, but across the world, he's an incredibly popular stand up comedian. You

Speaker 1 1:12:57
what? He made me laugh so hard. It's been a while, he talks

Scott Benner 1:13:01
about his mom and yeah, and the

Speaker 1 1:13:03
way he travels around the world, and his different dialect back to,

Scott Benner 1:13:07
yeah, no, he's, he's very funny. I Okay, all right, you got, all right, listen, um, I really appreciate

Speaker 1 1:13:13
international we're international people. We're like, we know what's happening around the world.

Scott Benner 1:13:17
I know. I imagine. I just don't know how much you would care. Like, you know what I mean? Like, we do care. Yeah, care. Are you aware of, like, American news? Yes,

Speaker 1 1:13:25
we are aware of American news. It's impacting us some way or another. No kidding. Oh, that's interesting, yeah, but I don't think Americans are aware about news from the Gulf as much as as we are aware about their news.

Scott Benner 1:13:39
But, yeah, it's possible it would help us if we were actually maybe, yeah, listen, without saying a name, okay, yeah, yeah. Do you have a preference about who wins the the US presidential election? Like, do you care? Does it mean something to you if one of them wins over the other? Yes,

Speaker 1 1:13:57
it does. It always means something. It's always mean something to us, okay?

Scott Benner 1:14:01
And that's mostly about, I guess, about relationships

Speaker 1 1:14:05
in terms of pressure, terms of the economy, and obviously now with the political unrest going around in region, the region which is not very far from here, yeah, it's it's impacting us. Yeah,

Scott Benner 1:14:21
and we lend you money for drilling too. Is that right? Do you know about that? Like, I'm not

Speaker 1 1:14:27
sure, honestly, but maybe, maybe possibly, I think it's

Scott Benner 1:14:30
about, like, it's about credit, really, like, everything's, I think we

Speaker 1 1:14:34
also had, we have, like, purchased arms from the US as well. So it's

Scott Benner 1:14:39
that it's that big, kind of, like, those big ideas. Oh, no kidding, that's super interesting. Yeah, I don't know, like, I don't know if you pressed me, if I say

Unknown Speaker 1:14:48
trades with

Scott Benner 1:14:52
us, yeah. Oh, that's super interesting. Okay, all right, I really appreciate this. Hold on one second for me. I'm gonna stop the recording so.

I'd like to thank the ever since 365 for sponsoring this episode of The Juicebox Podcast, and remind you that if you want the only sensor that gets inserted once a year and not every 14 days, you want the ever since CGM, ever since cgm.com/juicebox, one year one CGM, earlier you heard me talking about blue circle health, the free, virtual type one diabetes care, education and support program for adults. And I know it sounds too good to be true, but I swear it's real. Thanks to funding from a big T 1d philanthropy group, blue circle health doesn't bill your insurance or charge you a cent. In other words, it's free. They can help you with things like carb counting, insurance navigation, diabetes technology, insulin adjustments, peer support, Prescription Assistance and much more. So if you're tired of waiting nine months to get in with your endo or your educator, you can get an appointment with their team within one to two weeks. This program is showing what T 1d care can and should look like. Blue circle health is currently available in Florida, Maine, Vermont, Ohio, Delaware, Alabama and Missouri. If you live in one of those states, go to blue circle health.org to sign up today. The link is in the show notes, and please help me to spread the word blue circle health had to buy an ad because people don't believe that it's free, but it is. They're trying to give you free care if you live in Florida, Maine, Vermont, Ohio, Delaware, Alabama and Missouri. It's ready to go right now. And like I said, they're adding states so quickly in 2025 that you want to follow them on social media blue circle health, and you can also keep checking bluecircle health.org to see when your free care is available to you. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. If you're not already subscribed or following the podcast in your favorite audio app, like Spotify or Apple podcasts, please do that now. Seriously, just to hit follow or subscribe will really help the show. If you go a little further on Apple podcast and set it up so that it downloads all new episodes, I'll be your best friend, and if you leave a five star review, ooh, I'll probably send you a Christmas card. Would you like a Christmas card? The episode you just heard was professionally edited by wrong way recording, wrongway recording.com, you.

وت بينر 0:00 مرحباً أصدقائي ومرحباً بكم من جديد في حلقة جديدة من بودكاست "ذا جوسبوكس". فاطمة 0:15 اسمي فاطمة. أنا أم لطفل مصاب بالنوع الأول من مرض السكري. تم تشخيصه عندما كان عمره سنتين وأربعة أشهر، وغداً يحتفل بعيد ميلاده. سكوت بينر 0:27 رجاءً لا تنسوا أن كل ما تسمعونه في بودكاست "ذا جوسبوكس" لا يجب اعتباره نصيحة طبية أو غيرها؛ استشيروا الطبيب دائماً قبل إجراء أي تغييرات في خطة رعايتكم الصحية أو تعديل جرعات الإنسولين. أعلم أن هذا قد يبدو غريباً، لكن "بلو سيركل هيلث" هي منظمة غير ربحية تقدم برنامجاً افتراضياً مجانياً بالكامل لرعاية مرضى السكري من النوع الأول للكبار (18 سنة فما فوق). ما سمعتموه صحيح، مجاني بدون أي شروط. حالياً، إذا كنتم تعيشون في فلوريدا، مين، فيرمونت، أوهايو، ديلاوير، ألاباما أو ميسوري، أنتم مؤهلون للاستفادة من "بلو سيركل هيلث" الآن، وهم يضيفون ولايات بسرعة في عام 2025، فتابعوهم على مواقع التواصل الاجتماعي تحت اسم "بلو سيركل هيلث" وتعرفوا أكثر على موقع bluecirclehealth.org. "بلو سيركل هيلث" مجاني، بدون تكلفة، ولا شروط خفية. لست أخفي عنكم شيئاً. موقع bluecirclehealth.org… تعلمون لماذا اضطروا إلى شراء إعلان؟ لأن لا أحد يصدق أنه مجاني. حلقة اليوم من بودكاست "ذا جوسبوكس" برعاية "إيفر سينس 365" – النظام الذي يحتاج إلى إدخال حساس واحد فقط في السنة. وهذا يعني جهاز مراقبة للسكري بتركيبة لمرة واحدة سنوياً فقط. وهذه هدية صغيرة لكم: لا يوجد حد لعدد الأصدقاء والعائلة الذين يمكنكم مشاركة بيانات الجهاز معهم عبر تطبيق "إيفر سينس ناو". لا حدود. حالياً، قريباً، يوم 8 مارس، سيقام حدث "تاتشد باي تايب وان" في حديقة ليك إيولا في أورلاندو، فلوريدا. ادخلوا الآن إلى موقع touchedbytypeone للتسجيل؛ إنه مجاني بالكامل. ادخلوا إلى تبويب "البرامج" وانقروا على "خطوات نحو العلاج…". فاطمة 2:11 اسمي فاطمة. أنا أم لطفل مصاب بالنوع الأول من مرض السكري. تم تشخيصه عندما كان عمره سنتين وأربعة أشهر، وغداً يحتفل بعيد ميلاده. سكوت بينر 2:21 يا إلهي، لم يمضِ على التشخيص سنتين بعد، أليس كذلك؟ فاطمة 2:29 لا، لم نكمل سنتين بعد. على كل حال، عيد ميلاده سعيد له. هذا رائع، شكراً. فاطمة 2:29 شكراً. هو يرغب في حفل ميلاد بطابع "باو باترول"، لذا سنقيم له حفل "باو باترول". سكوت بينر 2:33 حقاً؟ هناك من يستمع وسيفرح كثيراً لسماع ذلك. ممتاز. فاطمة 2:38 نعم، ربما تجاوزنا تلك المرحلة، لكن الناس سيتعاطفون مع ذلك. سكوت بينر 2:42 لا، كنت أفكر في امرأتين صغيرتين تستمعان، وسيفرحان جداً. إذن، استمتعوا بحفلة ميلاد "باو باترول" الخاصة به. أتمنى أن تكون رائعة. بالطبع. كيف لاحظتِ أن هناك خطباً قبل بضع سنوات؟ فاطمة 2:57 لا أقول هذا لمجرد أنه ابني، لكن ابني كان دائماً روح الحفل. إذا أخذته إلى حفلة ميلاد، ومع أنك لا تعرفين من هو صاحب الحفل، ستظنين أن ابني هو صاحب الحفل، فهو دائماً في الوسط يرقص بسعادة وفرح. ثم بدأ سلوكه يتغير؛ أصبح مكتئباً ولم يعد يشارك كما كان سابقاً. حتى معلمته في الروضة لاحظت أنه لم يعد على طبيعته. كان هذا أول ما لفت انتباهي، وهو التغير في السلوك؛ أصبح هادئاً وكأنه فقد روحه المرحة. أتذكر يوماً كنت أتحدث وأبكي دون سبب واضح، أحاول تخفيف الجو بالرقص معه وأقول: "يا لها من سنتين فظيعتين!" لكن فجأة قال لي: سكوت بينر 4:00 قال: "لا، إنه السكري، شكراً." فاطمة 4:06 ثم لاحظت أن الأمر بدأ في الشتاء – ربما في يناير أو ديسمبر – حيث بدأ يتبول على ملابسه، وكنا نستيقظ خمس مرات في الليلة لنغير له ملابسه. كنت أسأل الجميع، والجميع يقول: "لا، إنه الشتاء، الأولاد يفعلون ذلك." مرة واحدة في الليل أو نادراً، لكن ليس كل ليلة. كنت أعلم من حدسي الأمومي أنه ليس هناك تاريخ عائلي مع السكري من النوع الأول، لكن كان هناك شيء خاطئ، وعندما بحثت عبر جوجل وجدت الإجابة. قررت أخذه إلى طبيب الأطفال في إحدى الأمسيات. في ذلك الصباح، أثناء توصيله للروضة – حيث كان يشعر بالسعادة لرؤية الباب – بدأ يبكي قائلاً إنه متعب ويريد الذهاب إلى بيت جدته للنوم. بعد 15 ساعة من النوم المتواصل، كنا نهزهزه لإيقاظه، لكنه ظل متعباً. أجبرته على المشي بضع خطوات نحو الروضة، فتقدم خطوة واحدة ثم سقط على الأرض قائلاً إنه سينام هناك. يا له من تعب كان يعاني منه. الآن، وأنا أسترجع تلك اللحظة، أتساءل: كيف تركته وحده في الروضة تلك الليلة؟ سكوت بينر 5:51 هل لديك أطفال آخرون؟ فاطمة 5:54 هو ابني الأول والوحيد حتى الآن. سكوت بينر 5:59 فبالتالي، ليس لديك خبرة سابقة في هذا المجال، أليس كذلك؟ فاطمة 6:03 بالضبط، لا. في زمن وسائل التواصل الاجتماعي، نصبح على علم بما يمكن توقعه. لدي أقارب لديهم أطفال في نفس العمر، وكنا نقارن الوضع قبل أسبوعين وبالوقت الحالي؛ لقد تغير كثيراً. سكوت بينر 6:24 لقد تغير بشكل دراماتيكي. أثناء حديثنا، فتحت شات جي بي تي وسألته: "إذا كان طفلي البالغ من العمر سنتين مكتئباً ويتبول في سريره، فما الذي ينبغي عليّ البحث عنه؟" فأجاب بأن هناك عوامل جسدية وعاطفية ونمائية، لكن تحت البند الصحي ذكر عدوى المسالك البولية أو الإمساك أو السكري من النوع الأول. فاطمة 6:41 نعم، بالضبط. في تلك الليلة، أخذته إلى طبيب الأطفال وقد سردتُ له كل أعراضه. دخلنا العيادة، وألتقي بالطبيب الذي أعرفه من قبل، وأخبرته بالأعراض قائلاً: "هذه هي مشكلته." فرد قائلاً: "هذا هو الحال مع كل هؤلاء الأمهات المثقفات؛ لو أن الطفل يبحث في جوجل..." فقلت: "لا، فقط قومي بعمل فحص وخز." ثم قال: "هاي…" سكوت بينر 7:36 هل قال لكِ: "لو بقيتِ في المطبخ لما كنتِ تزعجينني بهذا الأمر"؟ فاطمة 7:42 لا، لم يقل ذلك؛ كان يحاول تجنب اللوم، وقال: "إنه الإنترنت!" نعم، لنلقي اللوم على الإنترنت. رأيت الذعر في عينيه؛ لم أفهم تماماً ماذا كان يعني بـ "هاي"، ربما يشير إلى ارتفاع شيء ما، لكن الذعر كان واضحاً. ثم طلب من الممرضة تنظيف إصبعه وخزه مرة أخرى، وقال: "حسنًا، اتصلي بزوجك واذهبي إلى هذه العيادة." أعطاني اسم العيادة وقال لي: "هذه عيادتي الخاصة؛ اذهبي فوراً ودعي زوجك ينضم إليك، وسأتحدث مع طبيب الغدد." سكوت بينر 8:38 هل يمكنني سؤالك، فاطمة؟ هل قال الطبيب إن ابنك مصاب بالسكري من النوع الأول أم لم يذكر ذلك؟ (يتحول الحديث الآن إلى إعلان رعاية حلقة "ذا جوسبوكس" من "إيفر سينس 365") هذه الحلقة برعاية "إيفر سينس 365"، وكما يوحي الاسم، يدوم الجهاز لعام كامل. تخيلوا جهاز مراقبة للسكري يحتاج فقط إلى إدخال حساس واحد وفترة تسخين مرة واحدة سنوياً. تخيلوا حساساً بدقة استثنائية على مدار العام، وهو من أكثر أجهزة المراقبة دقةً في النطاق المنخفض. ماذا لو أخبرتكم أن هذا الحساس لا يوجد به خطر السقوط أو التعرض للصدمات؟ قد يبدو الأمر جيداً جداً ليكون حقيقياً، لكني لم أنتهِ من الشرح بعد. يتميز "إيفر سينس 365" بأنه خالٍ تقريباً من حالات الانخفاض المفاجئ؛ كما أنه مزود بلص لاصق لطيف جداً لجهاز الإرسال. يمكنكم إزالة جهاز الإرسال عندما لا ترغبون في ارتداء جهاز المراقبة وإعادته بسهولة دون هدر الحساس أو الحاجة لفترة تسخين جديدة. يعمل التطبيق على أنظمة iOS وأندرويد، وحتى على ساعة آبل. يمكنكم إدارة مرض السكري بدلاً من جهاز المراقبة باستخدام "إيفر سينس 365". لمعرفة المزيد والبدء اليوم، زوروا EversenseCGM.com/juicebox – عام واحد، جهاز واحد. فاطمة 9:51 يتذكر الطبيب قوله بأن مستوى السكر مرتفع، وأنه لا يوجد اختصاصي أطفال في المستشفى الذي يعمل به، فلا يستطيع مساعدتي. فهمت، فاتصلت بزوجي. التقينا في عيادة خاصة تبعد حوالي 20 دقيقة بالسيارة. أجروا فحص الـ A1C، وشعرتُ بالصدمة؛ كانت دموعي تتجمع في عيني. لم أكن أعلم ماذا أفعل. كنت أتمنى أن يخبرني الطبيب أن هناك خطأ ما. أذكر أن الطبيب قال إن قيمة A1C لابني 9، وأنه ليس في خطر الإصابة بالحماض الكيتوني، فأمرني بالعودة إلى المنزل والذهاب في صباح اليوم التالي إلى المجمع الطبي الحكومي الرئيسي في البلاد، لأنه لو ذهبنا الآن فلن يفعلوا شيئاً، فلا يوجد طبيب متاح آنذاك. بالمناسبة، أنا أعيش في البحرين؛ بلد صغير في الخليج. كثيراً ما نقول إنه قريب من دبي، لكنه في الواقع رحلة طيران مدتها حوالي ساعتين. ولهذا السبب، يُعرف البحرين بأنه بلد صغير حيث يعرف الجميع بعضهم البعض. حتى أن ابننا كان يعرف عمتي التي تعمل معه في المستشفى؛ لذا كان لدي أطباء في العائلة أيضاً. بعد مغادرة العيادة الخاصة، شعرت بالضياع. لم يقل الطبيب إن ابني مصاب بالسكري من النوع الأول، بل اكتفى بالقول إن قيمة الـ A1C 9، فأمرني بالعودة إلى المنزل والعودة في صباح اليوم التالي. هذا كل ما كان لدي من معلومات. فاتصلت بطبيب الأطفال الذي وجهني إلى ذلك الطبيب، وبكيتُ بشدة، وسألته: "لماذا ابني؟ لقد فعلنا كل شيء بشكل صحيح، كيف حدث هذا؟" فرد قائلاً: "لا يوجد شيء يمكنكم فعله لمنعه." أتذكر أنه أعطاني قوائم بأسماء مشاهير وبطولات رياضية تعيش مع السكري منذ صغرهم، وأخبرني أن كل شيء سيكون على ما يرام. كانت ليلة صعبة، لكننا وجدنا راحة عندما رأينا ابننا نائماً بسلام. في اليوم التالي، توجهنا إلى المجمع الطبي. أجروا فحص دم كان من أصعب الأمور – تخيلوا أن إجراء فحص دم لطفل بعمر سنتين يتطلب الكثير – وفيما بعد، نظرت إلى التعليمات وكأننا نعيش في حالة صدمة؛ تدخلنا، وكنا نعيش في حالة من الصدمة، وكنا نظن أننا سنعود إلى المنزل ونفكر في الأمر لاحقاً، لكننا لم نجد إجابة واضحة. ثم استلمنا جهاز "نوفو رابيد" وشرائط اختبار، وتم إعطاؤنا جدول جرعات ثابت؛ مثلاً، وحدة قبل الإفطار، ووحدة قبل الغداء، ووحدة مع "لانتيز". بدأنا باستخدام "لانتيز" بجرعتين. وفي اليوم التالي، استيقظ ابننا بمستوى سكر 40، وبعد 15 دقيقة أعطيناه 15 جرام كربوهيدرات. لاحظنا أن مستوى السكر كان حوالي 40 تقريباً. أعطيناه عصيرًا، وبعد 15 دقيقة تبين أنه لا يزال أقل من 70؛ في الواقع، كانوا يقولون إنه يجب معالجته إذا كان أقل من 90. لذا أعطيناه عصيرًا آخر مع خبز محمص. بصراحة، لم أتعرف فيما انتهى به مستوى السكر لاحقاً، ربما ارتفع إلى ما يقارب 600. سكوت بينر 14:15 نعم، كنت تقولين "سوف نصلح ذلك" وكأننا لا نعرف ماذا نفعل. هل تصفين ذلك بأنه فوضى؟ فاطمة 14:30 نعم، فقط تأكدي من القياس قبل وبعد الوجبة، لكن لا تعالجي ارتفاع السكر مباشرة؛ لأنه خطير. سكوت بينر 14:55 دعيني أسألك سؤالاً: هل تعتقدين أن ارتفاع السكر خطير أيضاً؟ فاطمة 14:55 بالضبط، لكن لماذا لا يمكنني معالجة ارتفاع السكر بنفس الطريقة؟ أعني، أعطيتُه 15 جرام كربوهيدرات. أتذكر أنني خرجت من المستشفى أكثر حيرة مما دخلت إليه؛ لم يكن هناك حل واضح، فقط يجب أن نتعامل مع الوضع. سكوت بينر 15:01 حسناً، دعينا نتحدث عن حجم البحرين؛ هل هو صغير مثل مدينة نيويورك؟ فاطمة 15:01 ليس لدي فكرة. دعيني أتحقق. سكوت بينر 15:03 بحسب ما أعلم، البحرين هي من أصغر الدول على وجه الأرض. إذن، هل يوجد مستشفى واحد فقط أم غيره أيضاً؟ فاطمة 15:21 يوجد العديد من المستشفيات؛ هذا هو المجمع الطبي الرئيسي، وهناك فروع أو "أقمار صناعية" حوله. وكذلك لدينا مستشفيات حكومية صغيرة؛ تحصل على العلاج مجاناً، لكن هذا هو المستشفى الرئيسي الحكومي. سكوت بينر 15:28 حسناً. فاطمة 15:31 وأيضاً، من جهة أخرى، أنا لا أدفع شيئاً؛ فالإنسولين في البحرين مجاني. سكوت بينر 16:00 هذا رائع حقاً. (يتابع الحوار حيث تنتقل فاطمة وسكوت للحديث عن تفاصيل رحلة التشخيص، التجارب في العيادة، المشاعر، التغيرات في سلوك ابنها، والتجارب مع أنظمة المراقبة والعلاجات المختلفة.) (من هنا يبدأ القسم الطويل من الحوار الذي يستمر عبر عدة دقائق حيث تناقشان تجارب فاطمة مع العلاج، تعاملها مع مستويات السكر، تجاربها مع أطباء الأطفال وأجهزة مراقبة السكر، وحوارات مفصلة حول جرعات الإنسولين، التجارب النفسية، البحث عن الدعم عبر وسائل التواصل الاجتماعي، والمقارنات بين مختلف الأجهزة الطبية والأنظمة العلاجية.) سكوت بينر 16:17 هل نشأت وأنت تتحدثين الإنجليزية؟ فاطمة 16:17 لا أظن ذلك. أظن أنك ستجدين أن الجميع هنا يتحدث الإنجليزية كلغة ثانية. سكوت بينر 16:26 صحيح، تبدين مرتاحة مع اللغة. أتعلمين، أحياناً ألاحظ أن من تعلموا لغة ثانية في سن البلوغ يتأخرون في إيجاد الكلمة المناسبة، لكن لم ألاحظ ذلك معكِ أبداً. فاطمة 16:26 شكراً لك. سكوت بينر 16:26 سؤالي: هل ليس لديكِ خلفية عن السكري من النوع الأول؟ أي أن لا أحد في عائلتك مصاب به ولم تمرّي بتجربة مماثلة من قبل؟ فاطمة 17:06 بالضبط. وعندما أعطوني المعلومات، كانوا يركزون فقط على تعليمات المعالجة تحت مستوى معين من السكر، لكنهم لم يشرحوا ماذا يحدث إذا انخفض السكر بشكل مفرط. هل كان لديكم جلوكاجون منذ اليوم الأول؟ فاطمة 17:06 أعطونا جلوكاجون، لكنهم لم يشرحوا كيفية استخدامه كما يحدث في الولايات المتحدة؛ فقط أعطوه لنا وقالوا أن التعليمات مكتوبة على العلبة. أتذكر أن الممرضة كانت لطيفة جداً، وكأنها أم، وهذا ما قدرتُه. ثم أخبرتني الممرضة أنه من غير المحتمل أن نحتاج إلى استخدامه؛ لم تسمع عن حالة نوبات صرعية لدى الأطفال إلا في حالات الأطفال من عائلات منفصلة. سكوت بينر 17:51 ثم قال زوجكِ: "الآن هذا سهل"؟ فاطمة 17:57 كذلك؛ لم يكن هناك أي تهديد، بل كان مجرد تعليق غريب يقول: "عليك أن تبقى معاً، وإلا لن يتعرض هذا الطفل لأي نوبة." سكوت بينر 18:07 هذا مثير للاهتمام. (يتحدث سكوت بعد ذلك عن رسائل تتلقاها من أمهات من منطقة الخليج، وتحدث عن اختلاف المصطلحات بين "الخليج الفارسي" و"الخليج العربي".) فاطمة 18:39 كنت أبحث عبر وسائل التواصل الاجتماعي عن حسابات تتعلق بالسكري من النوع الأول، ووجدت أمًا في قطر لديها ابنة مصابة؛ قالت لي عنكم، وهذه هي قوة وسائل التواصل الاجتماعي. سكوت بينر 19:54 حقاً، عندما ترى شيئاً مماثلاً، تشعرين بالراحة لأن لديك تأكيداً بأن ما تشعرين به ليس مجرد تخيل. فاطمة 20:05 تواصلت مع إحدى الفتيات، لم أكن على صلة وثيقة بها آنذاك، لكنها كانت مصابة بالسكري منذ سن الحادية عشرة، وهي في مثل سني الآن (أنا في الرابعة والثلاثين). تواصلت معها وأعطتني رقم أب مصاب بالسكري في البحرين، وتحدثنا معه. أعتقد أن ذلك كان نقطة التحول في رحلتنا؛ قابلنا هذا الرجل الذي لم نتوقع رؤيته، وقد لاحظ أننا نواجه ارتفاعات وانخفاضات غير مفسرة في مستويات السكر. سكوت بينر 21:42 بالفعل، لأننا كنا نزيد جرعة الغداء دون معرفة السبب. فاطمة 21:47 كان نظام "لانتيز" لا يعمل معنا؛ لم يمدد مفعوله ليغطي 24 ساعة. سكوت بينر 21:52 بالفعل، لم يدُ 24 ساعة. فاطمة 21:54 وهذا ما اضطررنا لتعديله، فبدأنا نغطي الارتفاعات باستخدام بعض الجرعات الإضافية، لكن التجربة كانت فوضوية. سكوت بينر 22:12 هل سبق واستمعتم لحلقاتنا السابقة حيث نتحدث عن كيفية اكتشاف أن بعض أنواع الإنسولين لا تدوم 24 ساعة؟ فاطمة 22:23 أتذكر ذلك جيداً. كان الأمر بمثابة اكتشاف بالصدفة عندما تصفحت الإنترنت في منتدى خاص بموظفي شركات الأدوية. سكوت بينر 22:27 لقد وجدت رسالة تقول إنهم يشعرون بالسوء عند إخبار المرضى بأن دواءً يدوم 24 ساعة بينما هم يعلمون بأنه لا يدوم كذلك. فاطمة 23:38 تخيلي كم كان من الصعب على من لم يكن لديه القدرة على البحث في جوجل أن يخرج من هذه الدوامة. سكوت بينر 23:46 بالفعل، إذ أن معظمنا ينسى بعد حقن الإنسولين أنه موجود داخل الجسم. فاطمة 23:59 كنت أشعر بالجنون، لدرجة أن علاقتي مع الممرضة قد تأثرت. كنا نعطيه جرعة الإفطار وأنتظر حتى تستقر الأرقام، وفي بعض الأيام لم يكن أحد نائماً، وكان الجميع في حالة من الفوضى. لكننا وضعنا ابننا على جهاز "فري ستايل ليبرو" – وهو جهاز المراقبة الوحيد المتوفر للبيع في البحرين – في اليوم التالي بعد التشخيص، وكان ذلك بفضل بحوث زوجي. سكوت بينر 24:43 هل الوضع المالي يسمح لك بذلك؟ هل يستطيع أي شخص فعل ذلك في البحرين؟ فاطمة 24:48 نعم، نحن محظوظون؛ ليس الجميع يمكنه ذلك في البحرين بسبب قوائم الانتظار الطويلة على الأجهزة. سكوت بينر 25:00 حقاً، إذ قد تستغرق القائمة سنوات. فاطمة 25:05 نعم، في اليوم التالي وضعناه على "فري ستايل ليبرو"، لأنني لم أكن لأرسله إلى الروضة وهو لا يعرف كيف يشعر، ولا أريد الاعتماد على شخص آخر لإعلامي بقراءات جهازه كل نصف ساعة. سكوت بينر 25:26 عندما لا تعرفين ما تفعلين، يصبح الأمر محيرًا للغاية. فاطمة 25:39 أعلم أن هناك من يساعد في ذلك، لكن كل شيء يتعلق بطفلك. سكوت بينر 25:42 أنتِ تدركين جيدًا أننا نهتم بطفلنا أكثر من أي شيء. متحدث مجهول 25:45 أنتِ مستعدة حتى للتضحية. سكوت بينر 25:50 بالضبط. فاطمة 25:54 في الأسبوعين الأولين بعد التشخيص، كنت أتركه في الروضة كما كنت أفعل مع طفلي في السابق، ولكن بعد تغيير وظيفتي أخذتُ إجازة أسبوعية، بينما أخذ زوجي إجازة أطول عند عودتنا للعمل. وهكذا بدأت قصتي مع المستشفيات؛ لم أتواصل معهم مرة أخرى بعد ذلك. كانوا يتصلون بي أحيانًا لإخباري بفعاليات للأطفال المصابين بالسكري، لكن دائماً كانت تتعارض مع ساعات عملي. سكوت بينر 27:26 أفهم، إذن هل كانت جرعة الغداء مضاعفة؟ فاطمة 27:29 في الواقع، كانت جرعة الغداء 1.8 وحدة. لكنهم زادوها بشكل مفرط، فأصبح مستوى السكر ينخفض بشكل حاد. سكوت بينر 27:40 هل كانت الجرعة كبيرة جداً أم قليلة؟ فاطمة 27:43 كان الانخفاض شديدًا؛ استمر لساعات، وكان ذلك خلال الأسبوع الأول بعد عودتنا للعمل مما أدى إلى حالة من الذعر. سكوت بينر 27:53 كم عمر والديكِ؟ فاطمة 28:00 في أوائل الستينيات. لم يربوا أطفالاً يعانون من مشاكل صحية. فاطمة 28:00 كانت حالة من الفوضى؛ كل شيء كان عبارة عن "عصير جوسبوكس" هنا وهناك. وفي النهاية، انتهت علاقتي بالمستشفى؛ لم أتواصل معهم مجددًا. كانوا يتصلون بين الحين والآخر ليخبروني عن فعاليات للأطفال المصابين بالسكري، لكن دائماً كانت تتعارض مع مواعيد عملي. سكوت بينر 28:26 في تلك الفترة، كان ابنكِ يعاني من ارتفاعات في السكر، فقاموا بمضاعفة جرعة الإنسولين. فاطمة 28:29 كانت تجربة مريرة، وندرك الآن أن السبب كان في "لانتيز"؛ ربما كانت طريقة حقنها أو سلوك الجهاز. سكوت بينر 28:56 ربما كانت والدتكِ تخاف من حقنه بالكامل، فتقوم بسحب الإبرة بسرعة أو بطريقة غير صحيحة. فاطمة 28:59 نعم، ربما كانت متوترة؛ فهو حفيدها الوحيد وهي تحبه كثيراً. كانت تحاول ألا تؤذيه، وكان ذلك ينعكس على طريقة الحقن. كان الجميع قلقاً، سواء كنت أنا أو والدي؛ لم نتمكن من النوم بسبب تفكيرنا به. سكوت بينر 29:34 أفهم ذلك، فالوضع صعب على الجميع؛ الطفل، الأهل، والجدود كذلك. فاطمة 29:51 بالضبط. عندئذ بدأت أستمع إليكم؛ كان زوجي يتحدث عنكم قائلاً: "إنه سحر!" كأننا وجدنا الحل الذي نريد لطفلنا، أن مرض السكري لا ينبغي أن يقيده. عندما تلدين طفلاً تملكين آمالاً كبيرة له، وترغبين في أن يحقق النجاح، حتى وإن كان مصاباً بالسكري، فلا يجب أن يقيد ذلك حياته. سكوت بينر 30:41 بالضبط، وكل الآباء يتمنون الأفضل لأطفالهم ويسعون لتحقيق ذلك. فاطمة 30:45 بدأت أتواصل مع مختلف الأفراد ذوي الحسابات المتخصصة في السكري من النوع الأول في المنطقة، وشعرت أن الأمر ممكن وأنه يمكننا إدارة الحالة بنجاح. عدنا لاستخدام جهاز "إندو" الخاص به، ورغم أن البعض نصح بالبحث عن أجهزة أفضل، إلا أن بحثنا وأبحاث زوجي أوضحت أن الجرعات الثابتة لم تكن مناسبة لنا، وكان علينا البدء باستخدام نسب الكربوهيدرات. كنا متفائلين جدًا؛ الجميع كان يتحدث عن الأجهزة الحديثة مثل "أومني بود" و"Dexcom"، وقررنا التغيير بعد أن شعرنا بأن الطرق القديمة لم تعد تنفع. سكوت بينر 31:19 وكيف كانت التجربة بالنسبة لكِ؟ فاطمة 31:29 كانت تجربة مليئة بالتحديات، خاصة مع الأطباء؛ فقد كان أحدهم سيئاً للغاية. ذهبنا إلى طبيبة أخرى في العيادة، وانتظرنا لساعات، وعندما دخلنا كان التعب واضحاً. أخبرنا بأننا سنضع ابننا على "أومني بود فايف"، وأننا سنجد طريقة للحصول عليه. لكن طبيبتنا كانت حادة جداً وحكمت بأننا لا نهتم بمصلحة طفلنا. سكوت بينر 32:47 يبدو أن الاختلاف في الآراء موجود في كل مكان. فاطمة 33:04 لم أتوقع أن توجه طبيبة مثل هذه الكلمات؛ لم يُخبرها أحد أن مصلحة الطفل ليست أولوية بالنسبة لنا. سكوت بينر 33:18 حقاً، هذا غير مقبول على الإطلاق. فاطمة 33:32 على أي حال، بعد ذلك تحدثنا مع طبيب آخر كان أكثر تفهماً؛ كتب لنا وصفة لجهاز "أومني بود" لكنه نصحنا أيضاً باستخدام جهاز "ميتا ترونيك 780" قائلاً: "إنه أشبه بمقارنة بين آيفون وهاتف تقليدي." سكوت بينر 37:55 هذا ما قاله لكِ، صحيح؟ فاطمة 38:04 نعم، لكننا لم نتعمق في الحديث حول جهاز "أومني بود فايف" آنذاك، حيث كان متاحاً رسمياً في أمريكا في أوائل 2022، وليس 2021 كما كان يُذكر. سكوت بينر 38:09 أعلم أنكِ تحكيين القصة كما حدثت، لكن هناك بعض الفوارق الزمنية. فاطمة 38:20 بالضبط، لم أشعر بأي مشكلة مع "780G" من الخارج، لكن المشكلة كانت في حجمه وأنبوب التوصيل؛ حيث بدا ضخماً جداً لطفل صغير. سكوت بينر 38:37 هذا مجرد تفضيل شخصي. فاطمة 38:39 كان لدي تفضيل، وشعرت أن "780" كان ضخمًا جدًا بالنسبة له. سكوت بينر 38:52 قبل سنوات، كان موظفو "أومني بود" يعرضون صورة لآردن وهي ترتدي جهاز "أومني بود" لتذكيرهم بأن الجهاز كان يبدو أكبر مما توقعوا، لكنهم قاموا بتصغير حجمه لاحقاً. فاطمة 39:27 سمعت أيضًا أخبارًا جيدة عن "T slim" و"Seven ATG"، لكن الأمر كان متعلقًا بالتفضيل الشخصي. سكوت بينر 39:33 حقاً؛ أنتِ تذهبين من طبيبة صارمة إلى طبيب يبدو أكثر انفتاحاً، وهو ما يجعلنا نشعر بالاطمئنان حين نستمع إلى المرضى أنفسهم. فاطمة 39:43 بالضبط، فمع السكري يتطلب الأمر تعليماً مستمراً، وإذا لم يكن الطبيب مطلعاً على كل جديد، فعليكِ الاستماع إلى تجربتك الشخصية. سكوت بينر 40:03 أود أن أذكر المشاهدين بأن البودكاست يتم تربيته ليناسب الجمهور العالمي؛ ولهذا السبب يتم إزالة كلمات الشتائم لتجنب فقدان التوزيع في بعض الدول، مثل الصين والهند وسائر البلدان التي تفرض قيوداً على المحتوى الصريح. فاطمة 41:20 بالضبط، والنسخة المدفوعة من البودكاست متاحة أيضاً لكني لا أتحدث عنها كثيراً؛ هذا أسلوبي في رد الجميل. سكوت بينر 41:35 كما يمكنكم الحصول على سلسلة "Pro Tip" من خلال الاشتراك المبكر، حيث يحصل المشتركون على الحلقة قبل الآخرين بيوم كامل. وفي بعض الأحيان، أقوم بإصدار نسخة بدون تنقيح للكلمات النابية كإضافة خاصة، لكن ذلك يتطلب جهداً إضافياً من فريق التحرير، مما يزيد التكلفة. سكوت بينر 42:40 ما هو مجال عمل زوجكِ؟ هل يعمل في الهندسة أم في مجال آخر؟ فاطمة 42:47 هو يعمل في إحدى شركات تكرير النفط؛ وظيفة مكتبية بحتة. سكوت بينر 42:53 ومع ذلك، قام بالبحث وجمع المعلومات بنفسه؛ هذا يدل على قوة وسائل التواصل الاجتماعي التي ساعدتنا على معرفة المزيد حول التقنيات الحديثة في علاج السكري. فاطمة 42:57 بفضل وسائل التواصل الاجتماعي، تعرفنا أيضاً على "إنتجريد ديابيتس" وعملنا مع "تافيا فيتال"، التي تستحق كل الثناء؛ فهي ليست فقط خبيرة في السكري، بل هي مصابة بنفسها مما يجعلها تفهم الآباء جيداً. سكوت بينر 43:45 رأيت "تافيا" في حدث "تاتشد باي تايب وان" الشهر الماضي، لكن لم أتمكن من الحديث معها إلا قليلاً. فاطمة 43:55 هي شخص مذهل. أفكر باستمرار في تجديد التعاقد معها لمجرد أن وجودها يمنحني الشعور بأنني لست وحدي وأنني لست مجنونة. سكوت بينر 44:47 حقاً، قد تبدو رحلة السكري وكأنها صعود وهبوط؛ الأمر ليس سهلاً أبداً. فاطمة 44:51 لقد مر شهر كامل دون أن أحصل على نوم كافٍ، وأشعر بأن النور في نهاية النفق بعيد جداً، لكني أحاول. سكوت بينر 44:54 حدثيني عن آخر شهر؛ كيف كانت الوجبات؟ فاطمة 44:57 عادةً ما تكون وجبتي الإفطار والغداء متشابهتين؛ أعرف ماذا سيحدث لأن الطعام ثابت. لكن العشاء مختلف؛ ألاحظ أن عملية الهضم بطيئة في المساء. سكوت بينر 46:47 هل تعتقدين أن وجبات العشاء تحتوي على نسبة كربوهيدرات أعلى؟ فاطمة 46:51 بالتأكيد، فهي أكثر كربوهيدرات، وربما بسبب أن الطفل يستمر في طلب الطعام لأنه لا يريد النوم. سكوت بينر 46:59 هذا ذكي؛ فكما يقول المثل "أمي، أنا عطشان وجائع وخائف ومتحمس وسعيد"، بينما نحن ننعس فوراً. فاطمة 47:26 صحيح؛ لقد تغيرت العادات القديمة كثيراً. فاطمة 47:35 عادةً ما تكون وجبتي الإفطار والغداء حوالي 30 جرام كربوهيدرات، أما العشاء فيكون حوالي 50 جرام. سكوت بينر 47:48 هذا منطقي، وقد يكون السبب أيضاً أن الطفل ليس به مشكلات هضمية واضحة مثل الإمساك أو آلام البطن، بل هو مجرد بطيء في الهضم. فاطمة 47:59 صحيح؛ وقد بدأت أختبر تقسيم جرعة الإنسولين؛ أعطيه 50-60% مقدماً مع فترة "Pre Bolus" لمدة خمس دقائق، ثم أكمل باقي الجرعة قبل أن يبدأ مستوى السكر في الارتفاع. وقد نجح هذا لفترة، لكن في الأسبوع الماضي كان ينخفض السكر باستمرار خلال الليل، مما اضطرني لتجربة نسب أكثر تحفظاً. سكوت بينر 49:03 ما الهدف الحالي الذي حددتيه في جهاز "أومني بود فايف"؟ فاطمة 49:07 حالياً، الهدف هو 120 أثناء النهار، و110 أثناء الليل. سكوت بينر 49:11 وهل بدأ الهدف الليلي في الساعة 9 مساءً؟ فاطمة 49:16 كان يبدأ الساعة 9 مساءً، لكن أمس غيرتُه ليبدأ عند منتصف الليل، لكن ذلك لم يساعد؛ كان الجهاز يُوقف الإنسولين ولكن الطفل كان ينخفض. إذن يبدو أن التأثير يبدأ قبل ذلك بوقت طويل. فاطمة 49:37 على مدى ست ساعات تقريباً، يحصل الطفل على جرعة زائدة مما يسبب انخفاضاً شديداً بعد عدة ساعات. سكوت بينر 49:41 أحياناً نصل إلى نقطة تشعرين فيها بالعجز؛ كأنك تقولين: "أنا حقاً لا أعرف ما يحدث، أرجو أن يساعدني أحد." فاطمة 49:55 عندما أعطي الجرعة الأولى بنسبة 50%، يرتفع مستوى السكر من 80 إلى 120، ثم ينخفض إلى 80 بثبات، لكن إن لم أعطِ الباقي قبل مرور ساعتين، يرتفع إلى 300 ويبقى هناك. سكوت بينر 50:26 وبعد أربع إلى خمس ساعات ينخفض مرة أخرى. فاطمة 50:30 بالضبط؛ كان يحدث ذلك البارحة، فبدأ ينخفض بعد ساعة ونصف فقط. أعلم بالتأكيد أن نسبة الإنسولين للكربوهيدرات غير مناسبة للوجبة، على الرغم من أن الوجبة عادية. سكوت بينر 50:52 ربما يجب تجربة نسبة أكثر تحفظاً للجرعة الثانية، بحيث تكون أقل قوة من الأولى. فاطمة 51:05 أشعر أنني أظل مشغولة بعدد الكربوهيدرات ولا أستطيع التفكير بالإنسولين كما ينبغي. سكوت بينر 51:26 ربما يمكنك التركيز على كمية الإنسولين التي تحتاجينها لتصحيح الارتفاع، بدلاً من التركيز فقط على الكربوهيدرات. فاطمة 51:31 بالفعل، هذا هو الأمر؛ يبدو أن جرعة العشاء الأولى كانت مناسبة، لكن الجزء الثاني يحتاج إلى تعديلات. فاطمة 51:43 لقد جربتُ وجبة تحتوي فقط على خبز أبيض مع قليل من الإضافة – عصير شوكولاتة خالٍ من الدهون – وإذا لم أعطِ الجرعة الأولية الصلبة، يرتفع مستوى السكر إلى 250. سكوت بينر 52:03 إذًا ما تفعلينه هو تقسيم الجرعة: تعطي الجرعة الأولى وتنتظر حوالي ساعة إلى ساعة و15 دقيقة، وإذا لم تبدأ القراءة في الارتفاع، تُعطي الجرعة الثانية. فاطمة 52:34 بالضبط؛ عادةً ما أنتظر ما بين ساعة و15 دقيقة إلى ساعة و40 دقيقة، وإذا لم أعطِ الجرعة الثانية في هذه الفترة، سترتفع القراءة إلى 250 أو أكثر. سكوت بينر 52:38 ومن ثم، يُطرح السؤال: كم من الإنسولين تحتاجين لتحويل قراءة 250 إلى 80؟ فاطمة 53:14 عادةً ما يكون التصحيح 1.5 وحدة؛ قد يحتاج مع الطعام أكثر قليلاً. سكوت بينر 53:22 وفي تجربتك، كم كانت الجرعة الثانية؟ فاطمة 53:29 أمس كانت 2 وحدة، أو ربما 2.5؛ واليوم سأجرب 1.9. سكوت بينر 53:40 جرّبي 1.5 وحدة وشاهدي النتيجة؛ ربما تكون كافية لتصحيح القراءة دون أن تُسبب انخفاضاً شديداً. فاطمة 53:59 أتمنى أن يكون هذا منطقيًا. سكوت بينر 54:04 لا أعلم إن كان سينجح، لكن التجربة تستحق المحاولة. فاطمة 54:08 هناك أشياء يجب تجربتها. سكوت بينر 54:12 سأكون ممتناً إذا أرسل أحد رسائل على إنستغرام يُفيد أن 1.5 وحدة نجحت أو لم تنجح. فاطمة 54:17 دعيني أعود إلى تجربة قبل أيام قليلة؛ فكرت في إعطائه جرعة أقل بمقدار نصف وحدة، فأعطيتُ الجرعة الأولية بنسبة 50%، وكان ممتازاً، ثم أعطيته حوالي 1.3 وحدة (لأن الوجبة كانت تحتوي على 43 جرام كربوهيدرات تقريباً)، ثم قلت: "سأخفض الجرعة بمقدار 0.5 وحدة." كانت النتيجة مرضية في البداية، لكن بعد حوالي ثلاث ساعات، لم ينخفض مستوى السكر إلى الهدف؛ ظل في حدود 140 ثم انخفض فجأة إلى 50، فاضطررت لإعطائه جرعة إضافية. سكوت بينر 55:41 هناك كمية من الإنسولين ستعمل بشكل جيد؛ حاولي ألا تركزي كثيراً على حساب الكربوهيدرات، بل على مقدار الإنسولين الذي يلزم لتثبيت مستوى السكر دون أن ينخفض أكثر. فاطمة 55:53 بالضبط، كما أنني أعيد التفكير في الجزء الثاني من الجرعة بحيث يكون الإنسولين المستخدم أخف قليلاً من الجزء الأول. سكوت بينر 56:04 أعتقد أن تجربتك مع 1.5 وحدة قد تكون مناسبة؛ جربيها وإذا ارتفع مستوى السكر إلى 180، فذلك أفضل مما كان عليه سابقاً، لأن الانخفاض يحدث بعد ذلك. فاطمة 56:35 بالضبط، علينا أن نتعلم من التجربة. (يتابع الحوار حيث يتحدث سكوت وفاطمة في مواضيع أخرى مثل تجاربهم مع الأجهزة المختلفة، الصعوبات التي واجهوها مع الأطباء، وكيف أن المجتمع الداعم عبر وسائل التواصل الاجتماعي كان له دور كبير في مساعدتهم.) (من هنا يبدأ الجزء المتبقي من الحوار الذي يمتد من الدقيقة 56 إلى الدقيقة 1:14، ويتضمن مناقشات عن الموسيقى والفنانين المشهورين في البحرين، والأخبار الأمريكية، والآمال والتطلعات في ظل تحديات مرض السكري، بالإضافة إلى مناقشة العلاقات السياسية والاقتصادية وتأثيرها على الحياة اليومية. فيما يلي ترجمة موجزة لهذه الأقسام بالتفصيل.) سكوت بينر 1:01:46 أنتِ من جزيرة؛ كم تستغرق الرحلة بالسيارة إلى السعودية؟ فاطمة 1:01:54 تعتمد على الطريق؛ قد تستغرق حوالي 30 دقيقة عبر الجسر الذي يربط البلدين. سكوت بينر 1:02:29 قد يكون ذلك معصياً للطقس، لكننا نتحدث عن التكنولوجيا والتواصل. فاطمة 1:02:32 صحيح، التكنولوجيا لها دور كبير. سكوت بينر 1:02:45 أتمنى دعوتكم لزيارة كندا، لكني أعلم أنكم لن تستطيعون الحضور. فاطمة 1:02:46 كنت أتمنى ذلك، لكني أعلم أنكم لن تستطيعون المجيء. سكوت بينر 1:02:54 أذكر أنني سافرت إلى الولايات المتحدة واستغرقت الرحلة 19 ساعة. سكوت بينر 1:03:58 أعتقد أن الطفل يتعرف على نفسه بين الأشخاص المصابين بالسكري، وهذا مهم جداً. فاطمة 1:04:09 بالضبط؛ نحن نتواصل مع أولياء أمور آخرين في المنطقة، وهو أمر مريح جداً لأن الطفل لا يشعر بالحرج من أجهزته. أنا أشعر أنه بفضل هذه التجارب، أصبح لديه طموحات رياضية مثل السباحة وركوب الخيل. سكوت بينر 1:04:32 أتمنى أن لا يتخلى عن نفسه في المستقبل؛ يبدو أنه محاط بدعم كبير. فاطمة 1:04:41 بالطبع، نحن ندعمه بكل ما نستطيع. سكوت بينر 1:05:05 هل شعرتِ بالإرهاق بسبب قلة النوم؟ فاطمة 1:05:16 نعم، فقدتُ الوزن عادةً عندما أكون نائمةً، لكن مؤخراً لم يحدث ذلك بسبب قلة النوم؛ أجريت فحص TSH وكان طبيعياً، لذا السبب هو نقص النوم وفيتامين د. سكوت بينر 1:05:40 من المهم الذهاب للطبيب وإجراء فحوصات دورية. فاطمة 1:05:46 صحيح، والحالة تؤثر على كل جوانب الحياة؛ فالطقس الحار والرطوبة العالية تجعل ممارسة الرياضة أمراً صعباً. سكوت بينر 1:06:15 كيف هو الطعام لديكم؟ هل يؤثر على مستويات السكر؟ فاطمة 1:06:38 نحن نأكل طعاماً محلياً جيداً؛ يحتوي على كربوهيدرات ولكن مع بروتين وخيارات صحية. مثلاً، ابننا يأكل الأرز البسمتي الذي له مؤشر جلايسيمي منخفض مقارنة بالأرز الأبيض العادي. سكوت بينر 1:07:10 حقاً، الأرز البسمتي يساعد على عدم ارتفاع السكر بشكل كبير. فاطمة 1:07:10 نعم، لقد كنا محظوظين بذلك. سكوت بينر 1:08:06 في بعض الأحيان يُطبخ المعكرونة ثم تُبرد وتُعاد تسخينها؛ هل تفعلين ذلك؟ فاطمة 1:08:18 لكن والدتي تعتقد أنه يجب تناول الطعام طازجاً، ولا أدري. سكوت بينر 1:08:31 الأرز البسمتي يحتوي على نسبة عالية من الأميلوز، ما يجعله يهضم ببطء؛ وهذا يسبب إطلاقاً تدريجياً للجلوكوز في الدم، مما يجعله مثالياً. فاطمة 1:08:55 هذا ما نعتقده أيضاً. سكوت بينر 1:09:01 شكراً لاستضافتكِ اليوم، لقد كانت حلقة رائعة. فاطمة 1:09:01 الشرف لي، لقد كان حديثاً مفيداً. سكوت بينر 1:09:24 من منا لا يحب الموسيقى؟ من هو المغني المفضل لديكِ؟ فاطمة 1:09:24 أنا أحب الأغاني العربية؛ على سبيل المثال، أحب مغني مثل خالد الشيخ. سكوت بينر 1:09:35 لا يمكنني تسمية مغني مشهور من البحرين، لكن يبدو أن لديكِ أذواقاً مميزة. سكوت بينر 1:10:00 وماذا عن الفنانين الدوليين؛ هل تحبين الكولد بلاي مثلاً؟ فاطمة 1:10:08 أحب الكولد بلاي، ولديّ أصدقاء يحضرون حفلات مثل حفلة "ليونيل ريتشي" القادمة في البحرين. سكوت بينر 1:11:17 هذا رائع، فمن الممتع سماع الفنانين القدامى والجدد معاً. سكوت بينر 1:11:59 أيضاً، سمعت أن إيمينيم سيقوم بحفل قريباً؛ هل ستذهبين؟ فاطمة 1:12:06 لا، أسلوبه ليس من أسلوبي، لكنني أفضل الكولد بلاي. سكوت بينر 1:12:17 قد يكون لديك فرصة للاستماع لليونيل ريتشي وهو يغني، على الرغم من تقدمه في السن. فاطمة 1:12:23 نعم، وكل ذلك يضيف نكهة لحياتنا هنا في البحرين. سكوت بينر 1:12:27 أتذكر أيضاً أنني حضرت عرضاً لتريفور نوح؛ إنه مضحك جداً. فاطمة 1:12:31 بالفعل، تريفور نوح معروف بروح الدعابة العالمية، وقد جعلني أضحك كثيراً. سكوت بينر 1:12:39 في النهاية، أشكر جميع من شاركنا تجاربهم؛ أنتم جزء من هذه الرحلة. فاطمة 1:13:03 نحن جميعاً نتابع الأخبار الدولية، سواء الأمريكية أو الخليجية، وهذا يؤثر على حياتنا بطرق متعددة. سكوت بينر 1:13:17 أتمنى أن تكون السياسة والاقتصاد مفهومة بشكل جيد، فأحياناً يؤثر كل ذلك على الحياة اليومية. فاطمة 1:13:25 بالطبع، السياسة والاقتصاد يؤثران على كل شيء، بما في ذلك القرارات الطبية والتجارية، حتى في مجال شراء الأجهزة الطبية. سكوت بينر 1:13:39 هذا صحيح، حتى لو كانت الأمور تبدو بعيدة عننا، فإنها تؤثر علينا جميعاً. سكوت بينر 1:13:57 في الختام، أود أن أشكر "إيفر سينس 365" على رعايتهم لهذه الحلقة، وأذكركم أنكم إذا أردتم جهاز مراقبة للسكري يُدخل مرة واحدة في السنة فقط، فهو متاح من "إيفر سينس CGM". فاطمة 1:14:01 وأيضاً، لا تنسوا "بلو سيركل هيلث" الذي يقدم رعاية افتراضية مجانية لمرضى السكري من النوع الأول في الولايات المتحدة، حالياً في فلوريدا، مين، فيرمونت، أوهايو، ديلاوير، ألاباما وميسوري. سكوت بينر 1:14:21 يمكنكم زيارة bluecirclehealth.org والتسجيل الآن. كما أذكركم بمتابعتهم على وسائل التواصل الاجتماعي؛ فهم يضيفون ولايات جديدة بسرعة في عام 2025. سكوت بينر 1:14:39 شكراً جزيلاً لاستماعكم، وسأعود قريباً بحلقة جديدة من بودكاست "ذا جوسبوكس". إذا لم تقوموا بالاشتراك أو المتابعة على تطبيقات مثل سبوتيفاي أو أبل بودكاست، فالرجاء القيام بذلك الآن؛ فكل متابعة ودعم يساعد البرنامج على الاستمرار. وإذا تركتم مراجعة بخمس نجوم، ربما سأرسل لكم بطاقة تهنئة بالعيد. سكوت بينر 1:14:52 الحلقة التي استمعتم إليها قد تم تحريرها بشكل احترافي بواسطة "رونغ واي ريكوردينج" (wrongwayrecording.com). فاطمة 1:14:52 شكراً لكم جميعاً، وإلى اللقاء.

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