#1213 Bad Reviews

Kelly has type 1 diabetes and a son with 2 antibodies.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome to episode 1213 of the Juicebox Podcast.

Kelly is a 30 year old type one she was diagnosed at 18 and she has a son who is three who has sporadically weird blood sugar tests and is positive for two type one diabetes antibodies. Nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. When you place your first order for ag one with my link, you'll get five free travel packs and a free year's supply of vitamin D. Drink ag one.com/juice box. If you're looking for community around type one diabetes, check out the Juicebox Podcast private Facebook group Juicebox Podcast type one diabetes, but everybody is welcome type one type two gestational loved ones. It doesn't matter to me. If you're impacted by diabetes, and you're looking for support, comfort or community check out Juicebox Podcast type one diabetes on Facebook. If you or a loved one has type one diabetes, please go to T one D exchange.org/juicebox. and complete the survey when you complete the survey you are helping to move type one diabetes research forward T one D exchange.org/juice box. This episode of The Juicebox Podcast is sponsored by us med U S med.com/juice box or call 888721151 for us med is where my daughter gets her diabetes supplies from and you could to use the link or number to get your free benefit check and get started today with us met. This show is sponsored today by the glucagon that my daughter carries G voc hypo Penn Find out more at G voc glucagon.com. Forward slash juicebox. My

Kelly 2:10
name is Kelly. I've been a type one for 18 years. And now I have a son who has sporadic blood sugars and two positive antibodies. But he's not on any insulin or anything yet. So we're just waiting to see what happens. Oh, wait, let

Scott Benner 2:26
me let me get my notes. Here you are, when I

Kelly 2:30
filled out your form, I was going like super fast that I was like I didn't want to miss the time slot, right. And so I just went super fast and didn't put a whole lot of information because I remembered hearing previously that you don't ever, like look at the form. So I was like, oh, whatever, we'll just we'll just figure it out.

Scott Benner 2:47
I I run my eyes over them before I turn the thing on. I don't read them ahead of time. And you are smart. Because you know, I'm not this is not me boasting. Although I'm not above that. I'm just saying this isn't what I'm doing right now. But I think twice a year, say to people, Hey, you can be on the show if you want to. And usually within two hours, I fill up six months of my year. I believe that it's crazy. And then I curse myself for the rest of the year. Because we're so busy. That Listen, it's nice to say I record the podcast pretty much every day of the week, Monday through Friday, a couple of times a year I slip somebody in on the weekends, if that's what they need. I don't mind that it's an hour and a half. I have like an invigorating conversation with somebody. It's no big deal, right? Like I know how to make that work with my life. It's when something comes up. Where I don't know a company comes out with something unexpectedly or someone sends me a message and they're like, here's my story. I'm like, Oh my God, I need to record with you right away. I literally start doubling and tripling up my days then because I don't leave myself any space that I have to do. But as I say that I didn't do it in 2024. And it's still 2023. So I have to plan ahead for 2025 not to have that happen to me. But I'm also not a great planner. So God knows that probably won't happen. I'm sorry. You've had type one for 18 years. Yes. I

Kelly 4:11
was diagnosed in 2005. Five holding, you know, I am all I'm 30 I have a birthday like next week. I

Scott Benner 4:19
am all 30 birthdays coming up. You're Oh wow. So you've had it for since you were like 11 1011 years old?

Kelly 4:27
I was 12. Yeah.

Scott Benner 4:30
And your son is how old?

Kelly 4:33
He is three. He'll be four next month.

Scott Benner 4:36
How did you know he has anybody's just

Kelly 4:39
kind of randomly tested him one day he had peed through his diaper the night before. And that was not typical of him. And I was like, let's just see. And it was right after he ate and he was like 250 or something around there. And I was like, oh, okay, well, that's weird. And so I had reached out to the pediatrician and he had reached out to the, the endocrinologist the pediatric endocrinologist, he did a few tests and then decided to run the antibody tests. I got a call a few days later. And I picked it up. And it was the doctor, it wasn't the nurse or the or the office staff. It was the doctor and I was like, Oh, crap, I know what that means. So he told me that two of his antibodies were positive. And then we entered into trial net. And so they're following him now to and we see the endocrinologist with him every few months, and we're just watching and waiting and seeing what happens. Telly,

Scott Benner 5:34
you know, I think that some people would hear you say, I tested his blood sugar was 250. And I thought, Oh, that's weird. And they think, and they think, oh, Kelly, you have type one diabetes, you thought, oh, he has diabetes. But I think this is a sign of the hopefulness of human beings. I really mean that. They you saw that and just was like, well, this could be potentially weird, but doesn't necessarily mean he has diabetes. And I honestly mean that I think I think that that hopeful nature, even in the face of things like that, I think that's how we persist. So I'm sorry, that happened. I can't imagine how upsetting it must have been. How long ago was that? That you had this experience?

Kelly 6:16
It was over a year ago? He was he was two at the time. I want to say it was like last summer?

Scott Benner 6:26
Do you look at him and think he has type one. Like when you if you were going to be honest with yourself, like when you think about him? In your mind, he has type one diabetes, or he doesn't, but he will or how do you think of it?

Kelly 6:38
Ah, it's kind of in between, like, I think of it like he kind of does like he's he does have a Dexcom. So we got that all situated. We got it all sorted out. We got insurance to approve it. So he wears a Dexcom. So I see that and that's like, seeing what his blood sugar's are doing regularly where he spikes to 300 but then sometimes they'll drop back down to 40. Right. So he's all over the place right now. And so I'm like, yeah, like he's for sure it got some stuff going on. But he's not. He's not being treated with anything yet. So I'm like, I know that he will. And he kind of does, but I mean, I don't I don't know that I have like a clear answer for that.

Scott Benner 7:19
Did you look at tz old?

Kelly 7:21
Um, yeah, but he's only three is too young for that. Right? Yeah. And also I kind of, I kind of hate the, the in between not knowing when it's gonna happen. And, to me, the TZ yield is gonna prolong that at this point. I'm like, can it just happen already so we can get a tackle on like, get start tackling it and then move on. Because it just it feels like this. This weight on the shoulders just waiting for a top and

Scott Benner 7:49
that's what I was gonna ask you about has the last year been difficult for you?

Kelly 7:53
It's gotten better. It was really hard at first because I see him spiking to 300 I know how crappy that feels. And I'm like, I want to do something about that. That does not feel good for him to be there. But you know the doctors I guess it's gonna come down eventually he's fine and I'm like, oh my god, he feels like crap like that's not okay.

Scott Benner 8:13
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Kelly 10:54
More than likely already he especially if he hits that 300 mark is body overcorrect and he drops to in the 40s. So I can't imagine I mean, I don't know my husband and I have been trying to brainstorm and figure out what there's got to be something that we can do. But I mean, at this point, overnight, he's writing in the 90s, you know, on his own, so

Scott Benner 11:21
does he not always spike with food? I

Kelly 11:24
mean, it depends highly what he eats. But he I mean, we aren't like we don't carb restrict or anything. He's He's three. And if I can get him to eat, I'm happy. So I mean, he'll eat like a bowl of ramen noodles, you know what I mean? And that'll spike him. But

Scott Benner 11:37
where my brain was going on that is, if you got ahead of a spike and stop it from ever happening. Would that not stop your body from trying to bring down a blood sugar? Right? So is it not just the timing? If you used insulin? I'm not saying you should. I'm just I'm wondering out loud. If you use insulin, using it after the numbers big. Now you're doubling up with what the body's like, oh, god, look, I can do something about this. But but if you did it before, and the number will never went up. Would the body react? Yeah. Where does the body still see the food and go, Oh, this is going to create a high blood sugar I need to put in something like I don't know how that would work? Actually.

Kelly 12:15
Yeah, I don't know either. And I've considered just trying it. So he did have my son did have a few days where he was writing. Like, the doctor has the note right now that he if he's over want to say 300 for more than three hours or something like that, like you can give him half a unit. And I'm like, okay, so we had picked up we had filled the human log prescription for him. And so I'm every so often I'm like, what if I just try it and see what happens. But I mean, to be very honest, the reason that I haven't is I'm like, if he has a low and we need help, we need to go to the emergency room, whatever. I don't want to get in trouble or get, you know, get my son taken away because I'm using this where I'm not supposed to.

Scott Benner 13:07
There's a lot of concerns there. Actually, even as I started talking through my idea, I thought, how would the body know that the blood sugar wasn't going to go up? The body is not reading a number, right? It's not reacting to a level. I don't even know now I'm wondering, she's gonna make myself a note how the hell does real insulin work? See ya. Yeah, let's find out about this is

Kelly 13:25
what I'm saying. I wish that his I wish that his antibodies would just take the rest of them and so that we could take over because I know how, you know, I know how injected insulin works. I can do that. But it's like this, this terrible in between that we're dealing with now. I'm like, I don't know how to do it.

Scott Benner 13:41
I don't know. It's crazy. It's terrible. Other children?

Kelly 13:44
I have three Yes. I have two girls. They are five and eight. And then my son is three.

Scott Benner 13:51
And how do you think your your husband's known you the whole time you've had diabetes? Right. So what was his reaction? did he expect this? Was he concerned about it?

Kelly 14:02
Like you mean concern that my? Yeah. Not uh, he was never openly concerned about it. Were you? Um, I mean, it's, it has always, you know, been on my mind, but I don't know that it was like a major concern. Like I just I just knew to you know, kind of watch out for things and that's kind of like what I said when he had peed through his diaper one night. I was like, oh, that's odd. Let's see what his blood sugar's

Scott Benner 14:29
doing. You're ending up other type one in your family. Nope, just

Kelly 14:34
me. I used to call myself the lucky one.

Scott Benner 14:37
Did that get boring? It did.

Kelly 14:39
It feels wrong. Now that like my son has that I'm like, I can't imagine ever saying something like that about him.

Scott Benner 14:45
Funny when it was about you, and that's mean we shouldn't say that. Exactly. Any other auto immune on either side, your husband or yours?

Kelly 14:54
I don't think there's really anything at all on my husband's side. Um, my side I think it's really just me honestly,

Scott Benner 15:05
Kelly, you're Irish?

Kelly 15:07
No, actually. I'm like, I'm like 50% Czech, and I don't know what the rest of it is.

Scott Benner 15:13
Okay, check, please. Can we call this one check? Please? Maybe? That's not a bad idea. Let's write that down. How about on your husband side? What's his background? I have no idea. You married that man. You don't know what he is?

Kelly 15:26
I mean, I know enough. But no, I don't.

Scott Benner 15:32
Really, you're such a lovely person. Okay, so there's no autoimmune on either side that you know of. You're the only one with type one. Got it? All right. I'm clear. What made you want to be on the podcast.

Kelly 15:46
I just I, I had to really listen to quite a bit. And I don't feel like I ever hear about, you know, really small kids are really young kids. And I also don't hear a lot about, you know, this kind of in between diagnosis that we've been talking about where it's like, kind of diagnosed but not really diagnosed and and how to handle it. I

Scott Benner 16:10
guess. I think you're handling it the way you're supposed to handle it. You try not to scream, and then you wait for diabetes to come. Are you prepared with glucagon for myself? In the house just in general? I mean, I have some for myself. Yes. Do you know how to use it on him if he needed it? I

Kelly 16:29
would I mean, yeah, well, it would just be the adult dose because I don't have his but yes, I do.

Scott Benner 16:34
And do you think he feels those lows when he goes to 40. Sometimes,

Kelly 16:38
some of them the other day, it was just a couple of weeks ago, he was low dropping, I have it set, I have his Dexcom alarms on my phone or the follow alarms set that I don't get any alarms until it's 55. Because the endocrinologist said, if his body is naturally creating these lows, don't treat them. And I'm like, okay, that really that's, that's really hard. And so I set it, so it doesn't give me any alarms until it's at 55. And I get this 55 And it's straight down and I'm like, oh boy, it dropped down into the 40s. And all of a sudden he crawls up on me next to the couch, just flat as a pancake and bawling his eyes out just scream crying and I'm like, Okay, I think you're feeling this one. I'm gonna treat it.

Scott Benner 17:27
Oh, God, I'm sorry to even ask this. But how does that make you feel?

Kelly 17:30
I mean, mostly frustrated that I'm not supposed to treat them. Yeah, you might you know what I mean? Like, I'm like, Come on, just give him like two marshmallows at 70 and call it good enough. Like,

Scott Benner 17:41
can I ask you why you wouldn't? I don't know. Because I was told not to. Lie, please. You married a guy without knowing his background. Why are you listening to this thing? Why are you making sense over here and not over there?

Kelly 17:54
I'm just a rule follower. I

Scott Benner 17:55
don't know. I'll give you a new rule. Don't let them get to 40 There's a rule now you can take care of it. Perfect. That's exactly what I needed. Welcome. It's all done now. I mean, in my opinion, anything that's causing him that much distress? I'd want to avoid?

Kelly 18:11
Yeah, usually it's not like that. Most of the time. I don't see the lows. Really at all. It's it's rare that I do see any sometimes I'll just get real cranky with a low and it's not. I mean, I don't who knows if it is or not, he's three. He's kind of a jerk. But

Scott Benner 18:31
he never turns into like a drunk baby kind of video that you'd be like delighted by on Tik Tok or something like that. He's never like dancing with a hat on or something. It's

Kelly 18:40
I don't watch the video. I

Scott Benner 18:42
don't know what you're talking about. Um, and babies that crazy? I don't mean they're really drunk people. First of all, let me be clear, do not let your babies drink if that's what you thought you heard just now, but like when babies like her, you know, like all like goofy and somebody takes a video of him and it's funny like it's never like that. It's either he's crying and screaming or he's low and you don't really notice it.

Kelly 19:01
Yeah, yeah, he definitely doesn't get the goofy lows. Okay.

Scott Benner 19:04
So this is interesting, right? Because you have a firsthand knowledge of what a low feels like for you what a high blood sugar feels like for you. And so most parents when their children go through something medical they don't know what's actually happening so it's easier I would think just to like tell the doctor said this like it's fine but when you really know what a low feels like, that's why you have that Pang inside of you. That's like, I should not be letting this happen. Yeah, I think so. Yeah. Well, that makes sense completely. This has nothing to do with your kid. But I thought you find this interesting. This person has not been on the show yet but I'm in contact with them. I'm just gonna stay vague. A girl around 1314 years old, has had type one diabetes for three years. And about I don't know now nine months ago started taking a week go V for weight loss, and is now from something Like 16 units of basil plus meal insulin down to two units of basil a day and nothing else. No way that crazy. So I don't know what to make of that. Exactly. But her mom sends me graphs. Weekly. I look at them, she shows me where the food is. It's It's insane. I can't that's wild. I can't make sense of it.

Kelly 20:22
I wish I could get my insurance to approve that for you. Yeah, for me.

Scott Benner 20:27
Interesting question. Would you want to GLP for weight for insulin, but would you be what were your well? Okay, well, then you can?

Kelly 20:34
I can't.

Scott Benner 20:35
Why have you got crappy insurance?

Kelly 20:38
I have great insurance, but it's TRICARE. So they're really strict about trying to get through drugs that are not on their formulary.

Scott Benner 20:48
Oh, it's not it's not on there. Well, that could change. Listen, I'm no soothsayer, I am also may not even be a person who can pronounce soothsayer exactly right. But I think that these formularies you're gonna have a hard time keeping GRPs off in the near future. I

Kelly 21:05
did just recently start trulicity like, three weeks ago.

Scott Benner 21:09
Okay. That's a pill, right? No, it's

Kelly 21:12
a

Scott Benner 21:13
that's an injection to? Yeah, I mean, is it working for you? Did you notice anything, I

Kelly 21:19
get full faster. But as far as, like insulin adjustments for the first like two days of the very first dose, I was taking, like maybe 50%. Like, typically, my total daily insulin is like 100 units 220. For those first two days, it was at like 56 to 62, like half like it had. But after those two days, it's really gone back to normal. And back on my normal Basal settings, and my normal normal Bolus settings. Everything is, I don't know, I'll

Scott Benner 21:56
share this with you. Although I don't have enough information about it to be thoughtful yet. But I do have the experience of the last two and a half weeks art and began using a GLP. One, she's done three injections so far. And her last injection was like four days ago. So she's two and a half weeks into it. Maybe her Basal has gone from 1.1 during the day 2.8. And her insulin sensitivity has gone from 42. That's one unit moves her 42 to one unit moves her 68. Like that's a huge, a huge reduction in insulin sensitivity. Yeah, it really was a big number. And on top of that, and again, it's anecdotal at this point, but she just had her first period with it. And her acne breakout was, I'd say 90% less than it usually is. Really? Yeah. And she's lost like eight pounds. Oh, interesting. Wow. So that's two weeks on the lowest dose? And those are the those are the impacts we've seen so far. So did she lose the weight? Because she's not using as much insulin? Maybe? Is she losing the weight? Because she's not eating as much? Probably? Is it hard? Because the adjustment period is difficult. It is like it's not easy. You know, there was, I think, a day and a half when she had her period on top of the the injection where she was just like, I don't think she ate for like a day and a half. And now she's getting back into it again. So she's adjusting to the medication, which takes time. I don't know, it's not for everybody. There's people, you know, their stories all over the place. I don't know. You never know all the information behind the stories like some people tell you like, Oh, I got like, an intestinal blockage. And I'm like, Oh, that's terrible. Like, did you already have an intestinal blockage? Like, you know, like, I don't know, like, what the medication does doesn't do to people like what the side effects are? I've been on we go V which is ozempic for like, since March, March, April, May, June, July, August, September, October 10 months, I've lost 40 pounds. It's fundamentally changed my life. And other things have happened for me to I don't know how to put into words. I have not made an emergency visit to a restroom in like, a year. So I have not been in the situation where like, oh my gosh, I have to go to the bathroom. And if I don't get there, there's going to be a problem. That was the thing that would occur in my life before it does not happen anymore. I used to have really bad acid reflux. It's gone. Like little things like that, that I can't really explain. Anyway, the point about Orton is, is that she's not even on what they would consider a therapeutic dose yet. She's using point two, five and she's having all these like experiences already. So that's amazing. I can't see how it doesn't end up being something but type ones are prescribed in the future.

Kelly 24:49
I really hope that's the case. i I can only imagine how beneficial it's got to be mean. I had great success for the first two days that I took it And I, it's very possible that they'll have to increase the dose and then I'll start seeing that across the board. If it can lessen the load of the, you know, the amount of insulin that a person has to take, that would be incredible.

Scott Benner 25:13
Yeah, or spikes or your time and range or, you know, a number of other things. Yeah, my

Kelly 25:16
spikes have definitely been a lot more gradual. Yeah,

Scott Benner 25:21
right. That's a big deal. And, you know, geez, now, what's gonna end up happening is that people are gonna say, doctors are gonna, like, freak out, they're gonna be like, Oh, your insulin needs are going away, right. And we can't do that, because I don't know how to adjust your insulin. Like, it's been a thing that I've had to pay attention to, like, We purposely did it while she was home from school. Because I don't know that, like, while she was away, I don't know if she could have handled it, to be honest. Like, because it was it was a really quick like, hey, we need to move this basil, we need to move this, like, you know, she was getting a low for like, two nights in a row. And I'm like, Okay, that's it. I'm calling this thing. I'm changing your settings. And now we're back to good again. But still, like, she had a little bit of a rise the other day, like a 120, or something that stuck for a while. And I watched the algorithm push at it. And she got low, like three hours later, and the algorithm wasn't able to stop it. So that means I don't know exactly yet. Like that is one of those things where like, I don't really know what dial to turn to stop that from happening. So I'm still figuring the whole thing out. But anyway, I wish people luck. It's, I'm not saying it's for everybody. And, you know, I'm sure you can google and find out that, you know, there's like a fifth of what's the one article that somebody tried to point to the other day, when people were arguing about this online, there's been a 15 100% increase in calls to poison control because of ozempic. And I was like, let me look at this. It took me eight seconds of googling to find the story. There has been a 15 100% increase, but it's because people are odd on it, not because it hurts them because they use it like the person tried to make it sound like oh, if you put this in you're in trouble. You have to call poison control. But that's not what's happening. People are either Miss dialing the the insulin giving themselves way too much and slowing their motility down their gut motility down so much. They think they've been poisoned. So do you see what I'm saying? So like, ah, yeah. So what we really do is we have a problem with people who don't know how to use pens and or doctors who don't know how to direct their patients, or maybe people who are just like, if point two five made me lose a pound. I wonder how much three would do. Right, right. Like, I don't know, you'll have that. You know what happens? But it's anecdotal information that people point to and then go Oh, see, there's a problem. Like, I don't know if you know all the facts. I don't either, but I'm not sure you do. Anyway. So you got him a CGM, that your insurance company was like, no problem. Your kid who doesn't have diabetes can have a CGM.

Kelly 27:46
We had to fight for it. The endo had requested it once. With TRICARE, it's easier to fill Dexcom through DME, they submitted it for prescription and they were like, yeah, absolutely not. So they had declined it. And then I think I had asked on your Facebook page, and Samantha was able to help me write a letter and formulate a letter and send it in and say like, Hey, listen, this is something that is really, really needed, we want to watch, make sure that he we catch any, you know, problems before this becomes DKA and hospitalization, and that's gonna cost you all this money, right? And so we were able to submit that and are you with insurance and they were able to, we were able to get it approved. Finally, is Sam not magical? He's amazing.

Scott Benner 28:45
He knows how to write those letters, right? It's not her profession, but it easily could be. It should be honestly, like, she's so good. Yeah, the problem is Kelly is like, Where would who pays you if that's your job? That's true. That's the problem. Because the insurance company, of course, they don't want those letters to work. They wouldn't care. I won some years ago. I don't ever remember what happened to it. But I was like, why don't you work for a company? Like those companies need people to get on their products? And insurance companies stand in the way and these letters get get them through? Like, wouldn't it make sense for the company to have somebody on staff that helped people write these letters? And I don't know, whatever happened to that? I mean, I don't know if it was a good idea or not, but it's just the thing I said out loud when I first met her. Sounds good to me. Sounds like a good idea. Yeah. But she's brilliant at that. And she just really understands or is very good at picking through the documentation. Yes, at the insurance company side. I

Kelly 29:41
know when I told her that we had TRICARE she was like, oh, no, we might not be able to make that happen. But she's really good. She's amazing.

Scott Benner 29:50
I didn't know that's what you did. But that's that's really cool. And another example of why that Facebook group is fantastic. And what really lovely person in there who spent by the way, how much time with you do you think until Oh,

Kelly 30:00
you know, it's been a year and a half. I'm not sure. The phone were

Scott Benner 30:04
you going back and forth and writing? Yeah, we were just messaging. And then did she actually write the letter for you? Did she tell you how to write it?

Kelly 30:11
She sent me what I am assuming is more like a template. And then we kind of work together to fill in the details.

Scott Benner 30:18
That's a stranger doing that with you who you didn't pay. That's amazing. Yeah, that's really cool. Anyway, you guys should check out the private Facebook group. There's people like that in there and a lot more. There's also crazy people. But very few, so don't worry. Right, Kelly, the ratio of lovely to crazy in my Facebook group is very slanted towards lovely. Oh, for sure. Most, most are great. Most are great. That's perfect. But a t shirt most third grade? A few make you question your sadly. Fantastic. So you just want diabetes to come? Because of this weird way of putting it. But yeah, you're like, Please get here. I think this is a very common feeling for people who are in a honeymoon situation, which is technically what you are. I mean, your does your son technically have lotto right now?

Kelly 31:06
That's what I feel like I would call it but I mean, he's three. So yeah,

Scott Benner 31:11
well, we should call it something latent autoimmune. diabetes in little babies. It's, well, I can tell you this, I raised the kid from two years old Till so far, almost 20 who had diabetes, she weighed 17 pounds the day she was diagnosed, there was no Dexcom there was no, I love a pen dorso pumping. Like, I didn't have any of that stuff. And it's okay. I look tired. So, don't expect your like 50 year old photos to look fantastic. Maybe. But, um, but it's doable, you know? And do you work full time?

Kelly 31:51
You don't I stay home. I homeschool my my two older kids at the moment. So you know

Scott Benner 31:57
what? Good? Because, you know, I'm sure this fluctuates constantly.

Kelly 32:06
For sure. It's actually helped me a lot to listen through the podcasts and kind of your story and your recall of you know how it was to raise a type one toddler. And it's very different than when I was diagnosed at 12. Oh, for sure. You know, I mean, it's a whole it's the same disease. And yet somehow there's almost no similarities between me at 12 and him with the exact same thing. At three.

Scott Benner 32:31
Is it frustrating that your experiences aren't valuable right now? Kind of Yeah, you think I have all this like knowledge? And it's like, it's almost right for this, but not quite. Yeah, exactly. There's a great episode that went up yesterday, I think it's just called Anonymous guest. And that person talks about how their father's diabetes kind of poorly impacted their diabetes, because the father had it such a long time ago that like, you know, he would say things to her, like, as long as your blood sugar isn't over 250 You know, and now, you know, she has issues like moving forward, but he thought he was giving state of the art cutting edge information, right, all those years ago. I wonder too, he is not alive. But I did wonder like, if you could say that to him, like you were you thought you were giving great advice, and you weren't. Right. Not that you're not you're stuff that you know, right now, because you're moving with it. Right? Like, yeah,

Kelly 33:25
for sure. Things have changed a lot. I mean, I think what Arden was diagnosed 2006 2006 i It was around the same time I was diagnosed in 2005. Okay, so it's been it's it's been just absolutely wild to see the progression. You know, of course, we're all told, you know, when you're diagnosed like, oh, the cure is coming. Right. And so you get that hope for a little while. But it, you know, that fizzles out eventually. And it's been really, really amazing to watch the technology and just kind of the way that diabetes is cared for the way that that is all changed 18 years, like just in my lifetime alone. Yeah,

Scott Benner 34:10
it's been very quick. I mean, I'm sure if we could look back over other 18 year chunks, and put them in context. They'd all feel like they were moving quickly. But this one with the addition of these technologies, and now like some of these drugs, like it's really leaping and leaping forward very, very quickly. Yeah, it's huge. Before Dexcom figured out that if they had people working in Washington to help understand the process of getting stuff through the system, things did not move quickly. And as a matter of fact, it would take sometimes three years for a meter company just to put out a new meter. And you when it came out, you realize that wasn't really any more accurate. Yeah,

Kelly 34:51
it was no different than the last except for maybe the shape and the color. Yeah, they changed

Scott Benner 34:55
the shape and the color had a light now and they were like look, it's brand new and we were all like, Oh my God, look at this, it's happening. They basically put handles on doors and we were like your recap as you come up with this, you know, like, this is the best thing that's ever happened. But Dexcom stepped up, and they were like, okay, you know, we're making advancements, we need to get this stuff through FDA. And then they, you know, I don't want to make it sound sinister. Like it's not like every pharma drug company has people who understand the the FDA process, and therefore the submission process and, and the, you know, resubmissions that happen, sometimes all that stuff, you have to have somebody on site that understands that those things go smoothly. I think Dexcom was the first diabetes device company to take that seriously. I don't know, I'm guessing, but they probably went to the pharma world and picked out a couple of people who understood device regulation, and brought them over. And now the whole thing just moves so much quicker, just that one of those, like decisions that none of us will really ever know about. That made everything kind of leap. And now, it's to the point where people are online. Dexcom puts out a G six. And I say, hey, Dexcom is coming on to talk about G six. What are your questions? Inevitably someone says, What's this? When will the g7 be out? Like as they're still launching the six, you know? And then the seven comes out, I say to anybody have questions for Dexcom, about g7 wins the g8 coming up, like now people have that like cell phone expectation about it, which is pretty crazy, you know, especially given that Arden had a little meter. Oh, I didn't mean to curse, although I did that nice conversation. She had this little like meter that I had kept for so long. I just threw it away the other day. Like, and it was just this tiny little, probably not accurate thing that look, junkie, and I just tossed in the garbage. I was like, oh my god, I left that in the bottom drawer for 15 years. So sentimental. I don't know what a weird thing to be sentimental about. Right. But anyway, so things have changed. You've moved with them? What's your agency right now? And what how do you manage

Kelly 37:07
6.0? Well, it was my last day once a just a few weeks ago, I use the Dexcom J six, and I have the tandem, I don't know, x two, or whatever they

Scott Benner 37:20
call it. That's control like you. Yeah, with tandem,

Kelly 37:23
I was using central IQ for a few years, I've actually turned it off recently, because,

Scott Benner 37:31
well,

Kelly 37:32
I was having trouble where I'm I know that one of my settings has to be off. But it would suspend, you know, it would say you're going to be able to 70 so it would suspend. And then it would suspend for so long that eventually I would shoot up to like, you know, 160, which is not that high. But then you know, the the algorithm was not aggressive enough to bring it back down. And that was usually happening overnight. And so I would wake up at 160. And I might want to start my day in a really crappy place. And I feel like, you know, I want to wake up at like, 90, that'd be great. And so I just I fiddled with it for weeks. And finally I just turned it off. Because without it suspending I can ride 70 overnight, and it's fine. And I gather I know that it wants to leave you you know, 112 and a half or whatever it is. But it's missing the mark. Okay, and it's not getting me I would be fine waking up at 112. But it's missing that and I'm waking up at 160. And I know that something is wrong, and I can't find what it is.

Scott Benner 38:41
So can I ask you prior to your son's issues? Would you have done more than fiddle with it and then shut it off?

Kelly 38:50
I wouldn't have fiddled with it at all.

Scott Benner 38:53
Oh,

Kelly 38:54
wait a minute, I would have been like Oh 160 Cool, whatever. Oh,

Scott Benner 38:59
are you trying to figure out diabetes better for him?

Kelly 39:03
Probably that's when I started listening to the podcast is after he was well I don't know he technically doesn't have a diagnosis. But after we kind of learned all this about him is when I started listening and I mean it has given me a lot of knowledge that you know, at 12 They give you I wasn't hospitalized when I was diagnosed. So I was at my like the family doctor. It was i They checked my sugar it was like 470 something and essentially the the doctor came in was like hey, you're type one diabetic sent me home. And again you'll go to Children's Hospital in the morning. They sent me for the entire day and then sent me home like they just sent me to do you know the the learning the teaching, like you know they teach you everything and they send you home and tell you to deal

Scott Benner 39:55
with it. What a great hospital they were able to teach you everything about type one diabetes and just today Did I

Kelly 40:00
mean we were fine? We were fine. I never died. That was everything that you really know. And you know, I feel like once you're taught things or or you go to a new doctor, right, and they just assume that the doctor before taught you, and so you don't ever learn more things like you kind of learn everything right at that moment. And yeah, the podcast itself has helped just really teach me some of that in between stuff like, like you said, they they taught me everything they know in one day, and then you never really get more information and more knowledge more, like, just stop there. Fine tuning

Scott Benner 40:40
and listen to you, and art. And we're, like you said, diagnosed around the same time. So it's counting carbs. It's insulin to carb ratio. It's will set your Basal and then you'll go back to the doctor if it has to be changed. And this is how you put an injection in a banana. and launch it get out of here. You're silly kids. Like, yeah, right. That's, that was that's what we got. The first time one of the questions pops up into your head. You know, when you the first time you think about a little broader you go, I don't have enough knowledge to make this next decision. Yeah. And then kind of I called the night Arden came home from the hospital. I called the endocrinologist at four o'clock in the morning and woke her up. No. And she's like, You can call me if you need I bet you should meet at four in the morning. But anyway, I woke her up. And I was like, this is Arden's blood sugar, and I want to give her this much insulin. Is that okay? And she was like, Yeah, I guess it sounds right. Oh, my God, this is the level of help. And that's a woman who was willing to give her personal phone number to me. That was still the level of help that she presented. Yesterday me mean, like, it wasn't any grand breakdown of the situation, or like an understanding of bigger ideas. And I don't think that's her fault either. I think the advent of CGM has really opened people's eyes in general to what blood sugars are doing. I know that we like to think that years ago, doctors just weren't telling you everything because they didn't think you could handle it or you didn't have the tools. I don't think they knew either. Yeah, yeah. I think the first time somebody said Oh, it went up to 300 and came back down. You didn't get low. That's fine. I think they meant that. Yeah. You know, and I was one of the you know, I was the person that would said, How do we stop it from getting highlight that, like, couldn't we do that? And they were like, No, bitch, I could. And then honestly, if you've really listened to the podcast, it's not until Arden's nurse practitioner tells us about Dexcom for the first time by telling us a story about another person. They put the CGM on the kid, he was like a 16, or 17 year old kid, I think. And the kid was like, Oh, I'm going to be able to eat my favorite candy again now, because I'll figure I'll figure out how to do this with this data. So it was that kid's mind. Having that thought, telling the nurse practitioner about it. She used it as a story to try to sell Dexcom to people because she thought she was saying you could eat candy. Like she wasn't being like high minded about it. You know what I mean? And then I heard that and thought, Oh, I understand what that kid is saying. What if we just put that on everything? And not just a snack. And then we start talking about it. Nine years later, you, Kelly, have the news about your child, find the podcast, and you're going to be really ready for him. And it sounds like you're doing better for yourself. So I I kind of wrongly assumed that you've been listening for a while. And you're just now here in your here telling me about your son, but you started listening because of him. So go back five years ago, what was your one C then

Kelly 43:47
five years ago? Let's see I have a five year old. So you gotta go back further. Before I had my first kid. I know you talked about it all the time. Right? Like, Oh, you did it because for another person. When I got pregnant with my first my agency was like, 10.1 I think? How old were

Scott Benner 44:07
you then? 2121. Did the math earlier when you said you're an eight year old? So. So you're 21 your agency's in the 10s and you didn't get pregnant on purpose?

Kelly 44:19
No.

Scott Benner 44:23
Sorry, I don't does anybody get pregnant on purpose? Are there just levels of like, I'm not going to try to stop this from happening. Okay, so that happens and you've you go to the doctor who probably flips out I'm imagining.

Kelly 44:40
Yeah, so I went to the OB I was only like six or seven weeks pregnant like very, very early on. My husband. Well, he was not my husband at the time. Yeah, he was out of town. I take my mom with me or

Scott Benner 44:56
she must have been thrilled.

Kelly 44:59
Is If we don't get along, let's put it that way. We're talking to the doctor and she for whatever reason, tells them like, oh, yeah, she hit over, you know, on the I didn't have a Dexcom at the time. So she tells me or she is talking, I had checked my blood sugar on a meter. And it had said, Hi. So it was over 600 which happened in later pregnancies as well just not at 600. But just ridiculous spikes really early on for me. And so she says that in the middle of the appointment in front of the doctor, and they admitted me to the hospital right away. Like all we got to figure this out, this is not okay. And I'm like, well, you're you're right. It's not okay. But like, I'm not 600 right now. Like, it was at like, 95. Right. I was like, I don't need to be admitted last. That's an

Scott Benner 45:49
average. But thank you. Great average, but it's not Yeah, that was my blood sugar's right now, way to tell me you don't know anything about what you're talking about? Yeah.

Kelly 46:00
I did not stick with that doctor's office.

Scott Benner 46:03
But but so you're so you're smacked immediately with that? Oh, wow, I have to bring my agency down by four points to have a healthy pregnancy. Hmm. How quickly did you do that? And how did you do that?

Kelly 46:16
It was really fast. When I say that, like that weekend that they had it. It made me that a hospital it was down to nine point something already. And by the end of the pregnancy, I was at 5.7.

Scott Benner 46:31
What did you do to lower it.

Kelly 46:32
So the maternal fetal doctor that I ended up going to his wife was type one. And so he actually you would go, I would go in about once a week. And he basically became my endocrinologist. He went through my pump settings, and he would adjust every little thing for me. And he kind of did it all for me at that time.

Scott Benner 46:57
So you met somebody who had some expanded knowledge who looked at you, and were like, you're not getting this done on your own? Basically. Yeah. And so was your higher agency mostly because of settings? No, no. Was it food settings not Bolus thing is it that is like the trifecta.

Kelly 47:15
I would say, and I don't know if this has to do with like age at diagnosis, or just my own mindset from probably age 1421 When I was pregnant, like, I didn't really test my blood sugar, like, maybe once or twice a day would just like, if I felt low, I might check. Sometimes I would just treat. And I mean, I would still take, you know, a Bolus or whatever, just to cover the food, but I wasn't really do ever doing corrections.

Scott Benner 47:53
Were you in the situation where you were diagnosed old enough that your parents are like Kelly's a good girl, she can take care of it. And they left you to your own devices? Yeah. Okay. Something like that. And when you said earlier, you don't get along with your mom really? Well, is that because you don't feel like she looked out for you as a child?

Kelly 48:10
Probably. But I mean, I'm sure there's more.

Scott Benner 48:14
Also crack. No, I'm just kidding. I'm sure your mom did do crack. And I didn't mean to say she did. I was just so that I mean, it's very common story. Like it's it's a mistake a lot of parents make. Yeah. But like that kids old enough for this, because they don't really even understand it. And they can come to the conclusion of like, well, we taught them to give the injections. They know how to do that. So that will just tell them to do it. And they'll do it. Exactly. Yeah. But that's listen, if you're thinking about right now, as a parent, I'll come out and say this, you're lying to yourself, or you're an idiot. That's one of the two.

Kelly 48:51
And it was it was really challenging. I mean, a lot of it is on them. Like they should have taken the reins and dealt with it. But I was also 12 I didn't want them to help me with anything. I wanted to handle it on my own. Like I was like, Oh, well, I know just as much as you do. We sat through the same classes together. Like I got this meaning

Scott Benner 49:11
list to me, Kelly, okay. I know, I've been a parent a long ass time. The amount of things I have to say to my kids that I know they don't want to hear from me is uncomfortable. I know why people don't want to do it. But that doesn't mean you get to skip it. I hate to say something to Arden yesterday, as I was saying it I was like she's gonna be pissed when I say that I was like, but it's my job to say it. Right? So what am I gonna do? Now? If she disregards me, she gets older and older and older, and, you know, sets herself on fire and explodes on I tried, but I can't go oh, she's not gonna like it if I say this to me, or she wants to do it on our own. So like, you have to find a way to communicate

Kelly 49:52
definitely like not pointing.

Scott Benner 49:57
And I'm not saying Listen communication, probably the root of most problem seems like people are poor communicators overall. Like I get that it's not specific to your mom or you know anybody else and I struggle with it. And I, I mean, you can make an argument that I communicate for a living now and still in my private life. I'm like, I'm gonna do this wrong. I know I'm gonna do this. You know, like, it still happens. But Jesus, you were a 10 when you were 21? Yeah, yeah. Yeah, you look back. Now, what does that? How does that make you feel?

Kelly 50:27
It just makes me like upset that I wasn't paying attention to it at all. I feel like at that age, you really feel invincible, like nothing's ever gonna happen, like you hear about. You hear about the complications that can happen. And you're like, Whatever, I'm fine. And I mean, I still am for now. But for now.

Scott Benner 50:51
You got to it in time, you know, it means you're pretty young. And hopefully, maybe you're talking about seven years in there, right? With like a double digit day one, say,

Kelly 51:01
when I still lived at home, I think a one sees were seven, maybe eight and a half.

Scott Benner 51:08
And that's a function of your mom being like, Did you test and stuff like that? Probably

Kelly 51:13
not. I mean, maybe I truly don't have a lot of memory of that time. You're

Scott Benner 51:19
probably not cut every mother so deep just now. Because you didn't say, oh, that lady. No, she didn't help me. Kelly, that was something. I took a lot out of those two words. I think I'm right, by the way. Okay, so just maybe because you were in that setting, it was more controlled. Maybe it was just you were following some of your own rules that you knew you had.

Kelly 51:46
Yeah, I mean, even when I am sure. I know that they used to ask me, you know, did you test what's your number? I to this day, I'm very uncomfortable, like I will show you but for whatever for some reason, telling you like saying the words I am you know, 170 Physically pained me at the time. So they would ask and I would probably either lie or just like, throw the meter on the table near them and be like, here, look at yourself. Oh, he's up my ass. Tell me I'm wrong. To bring Steve. I mean, in my head I was but outwardly

Scott Benner 52:33
to go put a second coating of black nail polish on now. Leave me alone. I'm afraid you'll see the whites of my nails if I don't. I hear you listen, it ain't easy. Like right. Like it's not easy to raise a kid who doesn't have anything medical going on? So let's say then this guy knocking you off pretty much saved your life.

Kelly 52:53
I mean, I don't know if you want to give him that much credit. But no, he's he's great. I love him.

Scott Benner 53:01
He's amazing. Yeah. Listen, how can you me you've set your parents at a pretty low bar. So you're I don't know. Honestly, Scott. I don't know if he's great. Or if it's just that he's here and he looks at me. Oh, you're making me reevaluate this. He might be terrible. It's might just be a perspective thing. No, I

Kelly 53:21
will say I have a great relationship with my dad. I love him. He's amazing. And my husband reminds me a lot of my father.

Scott Benner 53:27
Okay, lovely. I'm worried that I just made a bunch of women right now go Oh, my God, I have accepted so much less than I deserve because of how my parents were. Don't all go getting divorced. I'm sure you can fix them.

Kelly 53:38
It's not uncommon for people to

Scott Benner 53:41
Oh, you don't think that's uncommon? Every time you hear somebody say that if one generation of parents just took their jobs super seriously, and they were selfless. It would change the entire world. It's completely true and will never happen. So just too many people. But Bilasa bomber sorry, everybody. So your agency comes down to because you you want to be there for your your first daughter works and then you keep it down or she comes out and you're like, ooh, here I come. 10 What do you do afterwards? No,

Kelly 54:16
it's really stayed down. All of my kids have birthdays in January. So only

Scott Benner 54:21
horny once a year, apparently.

Kelly 54:27
I really enjoy April.

Scott Benner 54:31
I love Easter, Scott. I don't know what to tell you. Alright, sorry. That was inappropriate. I apologize for saying that. Anyway, what were you gonna say? Oh, my kids reporting January what?

Kelly 54:48
I was gonna say it's been nine years since I probably had that 5.7 When I was pregnant with her and I would say the highest that I have seen since then was probably I'm guessing I saw like a 7.8 right after she was born. Okay. And other than that, it's been mostly fives.

Scott Benner 55:14
Wow, good for you. That's really wonderful. I happen to know because you're in the group, but did your thyroid pop after the baby's or did you have a thyroid issue before? No,

Kelly 55:23
I actually got diagnosed with hypo thyroid. The same time I was diagnosed with type one. Oh, well, the same lab work

Scott Benner 55:32
you mind if I quote one of your tweets or one of your posts? Sure. Go ahead. My most recent TSH was 10 ish. Geez. I added site a mil so somebody's not managing your thyroid. Well, either. Yeah. What backwards state are you in? By the way?

Kelly 55:49
Um, we live in Florida right now. I'm

Scott Benner 55:52
sorry. I didn't mean that. I'm huge in Florida. I'm not insulting any of you. I love you guys. So how are you? How long is your TSH been that high?

Unknown Speaker 56:00
This is the only

Kelly 56:02
Well the last time I got bloodwork done was a year ago and it was two or so little under two.

Scott Benner 56:09
Kelly, are you not going for bloodwork every year for your thyroid?

Kelly 56:13
CoreSite? Yeah, what a question.

Scott Benner 56:15
How are you? Um,

Kelly 56:17
I shouldn't be doing it every six months. I usually go once a year.

Scott Benner 56:21
Okay. So you just had a big spike in TSH? It's not that it wasn't well managed before.

Kelly 56:25
Yeah, I've never felt particularly great. They did add the T three, the site ml. And so far, I think it's helping but I also. I mean, who knows? I might just think it's helping. So I don't know, the last time.

Scott Benner 56:43
I love the way you talk. You're like, oh, no, I've never really felt great. You know, when people talk about happy, I don't exactly know what they're talking about.

Kelly 56:57
The last time before now that my T three was checked, and I don't know how accurate like T three bloodwork is. But the last time that I had the T three checked was in 2017. Okay, so they've been checking T four TSH, and I don't know what else, whatever else. But the last time the T three was checked was 2017.

Scott Benner 57:22
They gave you site ml this time. Yeah, that helped anything? I think so more energy.

Kelly 57:29
I do have more energy.

Scott Benner 57:31
You feel more well rested? Yeah, yeah. Yeah. Okay. I love it. I have to say I love it. GLP for you, can we get that? How does that happen? Let's get you out of that insurance.

Kelly 57:44
You know what my husband's getting out of the military in September. I'm so excited.

Scott Benner 57:49
Oh, you see, maybe there's a chance here. There might

Kelly 57:52
be in like, you know, nine Marma.

Scott Benner 57:54
You have a job lined up? No, not yet. I mean, so far, the job of getting you pregnant on a consistent basis. Seems like he's good at that. Because, yeah,

Kelly 58:02
maybe he'll find a job in May.

Scott Benner 58:05
Yeah, when he's all happy. And later. By the way, for everyone wondering, I know, you've heard me say over the years, like, you know, I don't I only let out like a small portion of my sense of humor, because I think if I let it all out, it would just like you guys would all run away. Because I could be clear with you as far as stupid, childish humor goes, not not me as a whole person. But anyway, that that happened to me too quick, like I was already giggling. So my inhibitions were gone. And then you said April, and my, my brain goes Easter. And then it says, say something stupid. That's all that all comes out. Just so you know how it works? In my little head. I'm not apologizing for it. I actually think it was hilarious. But

Kelly 58:49
no, that's all how to present my sense of humor. Like,

Scott Benner 58:52
yeah, I imagine you would have hung up if it was like, and that's where the interview ended. And by the way, if that happened, I would have played it just like that. It just wouldn't come to a dead stop. I would have like in a very serious voice like months from now been like, Kelly left the call and never returned. I don't know what happened.

Kelly 59:12
For some reason we're posting a short episode this Yeah. I

Scott Benner 59:16
don't know what she just I mean, she's no sense of humor on that girl. Anyway, yeah. Okay. I don't know what to do. Now. I'm lost at this point. In case you're wondering. I've lost my way. And I have to record with Erica in an hour. So I'm like, trying to like I stacked my recordings up today before I have to leave. So here's what's happening. I'm leaving. Today. I should say this in the podcast. I am leaving today to go retrieve my son from Atlanta who has now been there for just two weeks shy of a full year. His contract is up on his job. He could have resigned it but he did not want to resign a year long lease. He thinks that he has learned everything he can learn from this position. And that now he is basically just poor forming a task, which there'd be nothing wrong with if that was the job he really wanted. But he was down there to get experience. And he's coming home now to start looking for another job and gain a different experience. He's also considering a master's degree. But anyway, I get to go get my kid. And so when I get done with you, I eat an egg. I record with Erica, I probably get rid of the egg, then I get my car. to Now my afternoon is gonna go I assume I'm gonna go to the bathroom around 1pm. And then I'm gonna head off to Atlanta, and help my son move home. So pretty excited. Anyway, that's my day. Kelly case you. Also, do you think we should apologize to rob for all the cutting he's had to do for the cursing and that other reference and stuff like that? We're sorry, Rob. You

Kelly 1:00:44
know, when I was like mentally preparing for this, I assumed there would be a lot of editing, did you?

Scott Benner 1:00:48
Because you know yourself or because you thought you and I together this would happen at some point.

Kelly 1:00:53
Oh, both. I actually figured I would let some fly too. But I've been I've been preserved.

Scott Benner 1:00:59
Isn't it insane? That the same person who helped you understand diabetes is the same person who said That's stupid. But he's actually find that amazing. There are times when you'll like, here's an example. I was at a gas station once, when a woman walked up to me and was waving her hand frantically in my face. And I put my window down. I was like, Hey, what's up? She goes, podcast. And I was like, Hold on one second. So I put the window back up. And then I finished what I was doing. And I got out of the car. And I was like, Hey, how are you? And she goes, good. I love your podcast. And I was like, Oh, thank you. And I was like, how do you? How did you know me? Like, I'm sitting in a car, you know? And she goes, I saw you out at the traffic light pulling in here. And I was like, Oh my God. That's Scott from the Juicebox Podcast. And I'm like, did you follow me in here? And she's, oh, yeah, maybe. And I was like, that she like, whips her kid out from behind her like, like a Russian nesting doll. She's like, this is my daughter. I was like, holy shit that person come from. She's like, she has diabetes, she starts talking about everything. And it was lovely. By the way, it was a wonderful interaction. And then I got back in my car. And I thought, How am I the person that that's happened to just now? Like, I really I have such stupid thoughts about so many other things. Like how am I that person? It's so weird.

Kelly 1:02:23
I wonder if that's why it's effective. So I feel like so often, like we go to the doctor, and we see them as this person, like up on a pedestal and they're so like, cut and dry. That it's hard, at least for me, like it's hard for me to like really absorb that. And so just being able to like, listen to you as somebody that I would get along with and be able to listen to you and like also have the stories tied into it. It's really effective style of I don't know learning for me, I

Scott Benner 1:02:52
guess you don't think I should over whiten my teeth and talk like a local weather person.

Kelly 1:02:58
Maybe you shouldn't give it a try for one episode.

Scott Benner 1:03:01
Such a headache. If I did that by the time it was over. Yeah, yeah. I mean, I don't put any effort into pretending to be nice or like to shine myself up or anything like that. So I take your point, it's, listen, I know. I mean, there's a person that's popping into my head right now who I won't disrespect by mentioning them. But they're, they're diabetes infos good. They're just not likable. I look at them. And I think, Oh, you're just not a person I'd want to hang out with that sucks because your info was rock solid. But it's that last piece of it in this digital age. It's not enough to just, it's not enough to be right. And you can't pretend to be likable. And by the way, not everyone likes me either. Like there are plenty of people who really don't like that I could read you a couple of reviews right now of people who do not do and that are not going to like the Easter reference either. The same people that left that review call me but will you read some of them? Do you want me to?

Kelly 1:03:57
I really

Scott Benner 1:03:58
do you want me to Alright, so this is how we're going to end Kelly I'm going to read I gotta find them. I didn't know we were gonna do this. Oh God, this is gonna be embarrassing. I've never done this before. One lady I think flat out call me a misogynist. Which by the way I do not agree with how do I get to? You would think I would know. Being the person who does this. I just burped? Could you hear it?

Kelly 1:04:23
I didn't. What a great

Scott Benner 1:04:25
microphone. Mic is amazing. I sometimes cracked my knuckles while I'm doing it. I don't think people can hear that either.

Kelly 1:04:31
I've been popping a I'm holding a highlighter in my hand. I've been popping the cap and I do that

Scott Benner 1:04:36
all day with

Kelly 1:04:37
my I'm hoping that it's not a lot of editing for your editor and he can't

Scott Benner 1:04:41
actually hear it. Okay, I'm scrolling back. Oh, okay. Here's the first one. I'm just gonna Oh, Jesus Christ. I'm just gonna read it. Okay. One star hosts needs to let guests speak. Yeah, okay. We know. I am. Wait, am I the only one that notices how he's talking the majority of the time. I had to unsubscribe, I couldn't take it anymore. He cuts them off all the time. And on more than one occasion he'll make cringe comments that I'm sure. I don't know what she's talking about. He makes cringe comments that I'm sure makes the guests uncomfortable. Were you uncomfortable today, Kelly?

Kelly 1:05:22
No, I'm so much enjoyment. Okay. Well, I'm

Scott Benner 1:05:25
shocked how not enough people have commented on this. Now, interesting enough, this person who left this review about three months ago, I think if you asked me to step out of this, I would tell you that this person has had an experience in their life where joking around things that may be sexual in nature, make her very uncomfortable. And God bless if that's how it makes her feel. I don't certainly don't want her to listen either. I don't know how a person doesn't look at 1300 reviews that are all except for hers and a handful of others five star and say things like my fear and anxiety has subsided. This is a literal lifesaver. This is an excellent podcast. Heavenly best. Like this has been a huge help to me. Like I don't know how you don't look at the other reviews and go i Why am I the outlier here. But now an outlier. Sure but TMI as a diabetic, one star by the way, I by the way, you can't give zero stars where I assume they would. I used to love this podcast as it gave me so many mi two moments of connections with other diabetics out there. But recently, the interviews are peppered with inappropriate content for a podcast about diabetes. Be still a she didn't say be still I said that the poor woman being interviewed must endure jokes about their bodies in their personal and intimate relationships indoor, okay, I can feel the awkward CRINGE CRINGE toys of the guests. If it were me, I might just hang up. Unfortunately, the content has gone downhill. Now. This podcast is nine years old. It's going into its 10th year, it is the largest diabetes podcast in the world. And it is downloaded at the same level as other high level health and fitness podcast, things that are put out by major corporations that have giant businesses behind them. The contents not going downhill. It's not, but it did for her, which is fine. And but by the way, she's actually it's interesting. She's referencing one specific episode, where I know that that this is what this is. And I went back to the person who I interviewed to make sure that I didn't miss something. So here's the here's the layout for how this, this review happens. I'm talking to a girl who's now 22 years old or something like that. And during the course of the conversation, she's telling me how her I think our parents have like a lot of children, right? And her dad works like a bunch of jobs. And I said, Well, yeah, he has to like work a bunch of jobs. He's he's got all these kids, he must have never been home. I'm paraphrasing now, Kelly. But I did say something specifically, like, you must have only known your dad is the guy who came home, swatted your mom on the s in the kitchen, and then went to sleep. And I said that because I thought, jeez, you must be like a real sexualized person have seven kids and only be around each other. Like, it's a lot of kids get up and leg like and I was like, they must just like he's never home. They must either be like, being intimate or sleeping. Like, you know, anyway, the girl laughs and everything. And I think oh, gosh, was she laughing to be polite? So I'm going to make the effort. Because of this review, I was going to make the effort to go contact this person to make sure I didn't make them feel uncomfortable. So I searched my email for them. And what do I find, but an email from a couple of days after we did the interview. And again, I don't know the exact words, but here's the gist of it. Oh my god, I had so much fun doing this with you. I hope that the people listening had as much fun as I did. So this person who left this review, I will say to you as well, your reaction probably has more to do with your personal situation that it does. The person you're listening to on the pious you're making a lot of you taking a lot of leaps here deciding how that poor woman must have felt because that poor woman had a great time and loved being on this podcast. So you know, it's fine with me so I get that that's gonna happen now let's get to the others hold on a second. We're scrolling scrolling. Here's another one about that specific interview said it was creepy. Couldn't you tell she was uncomfortable? She wasn't you just thought she was oh, this ruffled a lot of feathers? Well, that one that one comment about somebody coming in the house and slapping their wife on the button.

Kelly 1:09:53
By the way, do you think it's because you were talking about like her parents and not about her her like her? So

Scott Benner 1:10:00
I think it's because she was in her early 20s. And I talked about her parents, and they probably, I'm gonna guess their parents didn't have a great relationship, or they were watching their parents, like get along in the living room or something like something weird had to happen. You know what I mean? Like they walked in one too many times, while their mom was in weird garter belts or something. Something had to happen. This next one. This one is, I'm sorry, I think this one's funny. One star chauvinist. This is a quote, my wife has two jobs, keep the dog quiet. And think of excuses why not to have sex with me. That is something I said on the podcast that it says safe to say I won't be listening to this podcast again. Now.

Kelly 1:10:48
I don't. But to be fair, just imagine that's like the first episode.

Scott Benner 1:10:53
I'm like, there are times when I say something, I think God if this is someone's first episode, they're not coming back. But so usually, I say, my wife has two jobs, not know when the trash goes out and come up with excuses to have sex with me. But this was a reference inside of an episode, there was a dog, but my dog was barking. And I and I said to the person I was interviewing, I'm so sorry. This is this is my wife's job. She only has two jobs. And I was trying to be funny. By the way, my wife has an incredibly high level job where she helps a lot of people and she's the brightest person I've ever met in my life. But these other two things are also true. So anyway, that person did not like me, either. scrolling, scrolling. Here's one that gave me four stars, and talks glowingly about the podcast. But then says I talk too much. To which I would say to her, this is a podcast. Imagine how it would be if I didn't talk. That's true. And people came on and weren't good at carrying the conversation, which by the way everyone thinks they are, but most people aren't. So this one by the way, the last one that was bad. The call me chauvinist was from Great Britain. This one's also from Great Britain, maybe I don't know well liked. Well, I have I, I have a lot of downloads in the GB but okay.

Kelly 1:12:20
They're just telling all their friends about how bad it is.

Scott Benner 1:12:24
The chauvinist guy talking about diabetes, this one again, one star, I don't think we're at this one. This one doesn't hurt but self centered is the title of this review. I searched out glycemic index on podcasts in an effort to educate myself. Let me say I am not diabetic nor thankfully, are any of my family. Okay? I do however, like to be informed. Like imagine you wake up tomorrow, and you're like, I just really want to understand the glycemic load. Anyway, God bless. I have to say I found Scott irritating and very self centered as he spoke over, this is going to go up, Jenny. While she was trying to make a point, Jenny and I have recorded together about 200 times, we are insanely good friends. And privately that woman has told me that she thinks I'm single handedly saving people with diabetes. This is not in any way reflective of Jenny and my relationship. So I must have just spoken over Jenny mistakenly. And this is what happened when the person heard that. Furthermore, he seemed to boast how when wearing a glucose monitor, he couldn't get his sugar to spike, even though he gorged himself eating two slices of cake. So yes, I wasn't first of all, it wasn't boasting. It was making the point that a person with a functioning pancreas can have two slices of cake and their blood sugar doesn't spike. I'm I'm you understand, well, you have diabetes, you understand? But like she she obviously understand. I left the podcast early. I won't be listening again. 45 minutes of my life, I won't ever get back. And she put a sad face. She's I don't know what to say to that person. You just you you fundamentally misunderstood everything you heard. But in one listening of a podcast felt compelled to go leave a horrible review of it. That part freaks me out. Like I've heard things and seeing things in my life I didn't enjoy. It's never occurred to me to be like, I have to now go tell everybody not to do. That throws me a little bit if I'm being honest, Kelly, are you having fun with this or should we stop? Yeah, I'm good. I'll see if I can find it.

Kelly 1:14:35
Was it my kids aren't here I never have this time.

Scott Benner 1:14:39
By the way, I'm scrolling past I'm not kidding you hundreds of glowing five star reviews to get to these for them. Sort them. What do you think the internet is made for use? Like

Kelly 1:14:49
click on the like, you know at the top like on Amazon or target. It'll say like five stars. 4321 you can click on one it'll give you all the one star reviews.

Scott Benner 1:14:58
I'm the creator. I don't see the internet The same way you do hold on a second, I get, oh, I'm reading. Oh, this person thinks I'm only positive towards paid sponsors products. I don't think that's true. I'm scrolling. This one. I love how matter of fact, this one is two stars helpful information, brilliant information and great tips offered on the podcast. I've gained insight on management, which has resulted in better control of my type one diabetes. And Jenny Smith adds credibility to the material provided. What a great review, right? The host Scott talks too much and cuts people off two stars, hey, how about this brilliant information and great tips offered on the podcast have gained insight on my management which results in better control Jenny Smith adds credibility. Thank you. What about that? Thank you. You know, the

Kelly 1:15:56
guy runs a podcast which he much talk on,

Scott Benner 1:15:59
motherfucker. Just can say thank you and be done with it. Like, oh, you know, this guy. He spends his whole life making a podcast where he takes the breath of his information from the last blah blah blah years have written badminton. And it's helped me immensely I don't love his speaking pattern though. He should go himself you're out of your mind. What a horrible thing. That's all persons this way. Isn't

Kelly 1:16:25
that kind of what you were saying earlier about the other one though, like great information sucks to listen to

Scott Benner 1:16:30
I can't get to the I can't I haven't found the one yet that AI is my absolute favorite one. It's just like I love this podcast. I hate that guy. Can be too much focused on him at times three stars host talks a lot about himself versus interviewing the guests but he can have great content. Pick one you can idiot I'm making the great content you motherfuckers I'm Do you know I interview Kelly. You've been lovely today and most people are but I've interviewed people who are the the entertainment equivalent of dry mud in your Okay. And you don't know that because I made them interesting. You'll never know that they're lovely. You'll never know you won't go back and listen to go this person was not good. I sussed out in three seconds. They weren't going to be good at it and I peppered in more conversation to draw them along. Like you again. Just say thank you. Hold on a second. Scrolling scrolling five stars. Five stars five stars. This one these pisses me off more than anything. This is a glowing review that they they only clicked on three stars. It really bothers me Kelly, I don't know why. Kelly, are you there? Did you die?

Kelly 1:17:42
I'm here.

Scott Benner 1:17:43
Can you hear me? Yeah, no, I can. Well, it's like it

Kelly 1:17:46
doesn't give you what's your like a war overall rating? Like 4.8? Yeah, I'm

Scott Benner 1:17:51
like 4.8 isn't really Yeah, yeah, I'm great. Well, it's a good good. Yeah. This person doesn't like the ads. That's interesting to me. If you don't want the ads, then you're not getting the podcast. So I gotta live to did

Kelly 1:18:05
you get up and running? I thought I had seen in your Facebook group that you are going to be starting a like a subscription one.

Scott Benner 1:18:12
I got it set up. But I hate the idea of it still. It's got right now it has all the pro tips in it with no ads.

Kelly 1:18:20
And I was thinking you're gonna do after dark and it's still

Scott Benner 1:18:24
I decided to do something else this year first.

Kelly 1:18:25
Well, I love the after dark.

Scott Benner 1:18:28
Can I tell you what I'm going to do though? Because by now it'll be out for years, or four months, I'm doing a series called cold wind. And I'm having healthcare professionals on and other people around the healthcare industry. They're speaking anonymously and having their voices changed and they're telling me about their jobs.

Kelly 1:18:45
Okay, just so like endos or just across the board. Anyone

Scott Benner 1:18:50
nurses have an HR professional who talks about how they've been doing how many times they fired somebody over 25 years for having a health issue. Okay, okay, directed by the CEO, stuff like that. This one's funny. There is occasionally some interesting stories or nice tips, but it's pretty much an hour plus long commercial for Omnipod and Dexcom. Omnipod index some of the stuff my daughter wears, so that's probably why that feels that way to you. Because of the words I say

Kelly 1:19:20
Dexcom is also the best there is. I mean, I can't speak on Omnipod I've never used it but Dexcom I just remember ah, it was probably like 2006 or 2007 I was wearing what Medtronic had put out some kind of awful, awful, awful awful sensor. It was not accurate but also like

Unknown Speaker 1:19:45
hard to use and

Kelly 1:19:46
painful. It hurts so bad and then like the you know the transmitter part you would click in it didn't secure in any way except right at the click in part so it would just like flap around. Oh,

Scott Benner 1:19:57
in fairness to them. I've heard really good thing about their new system and their new CGM. So

Kelly 1:20:02
that's great. It was really bad like 15 years.

Scott Benner 1:20:04
I've definitely heard that speaking of like, a long time ago, I've now had to scroll back like four years to get to this bad one. But here is an example of a review that is about you, not me. Okay? Mixed emotions two stars. Overall, I have nothing bad to say about this show, as it does a very good job educating diabetics about new technology and experiences surrounding the type one diabetes life. However, what continues to get under my skin is how much the host continues to talk about it. By the way, I don't like it when people use the same word twice in one sentence, but you don't see me writing can review about it. However, what continues to get under my skin is how much the host continues to talk about his daughter to the point of interrupting, and one upping their experiences. This has at times caused me to become frustrated and turn the show off, as it makes the conversations disjointed and pulled off topic. The show isn't about art, and it's about type one diabetes. I suppose if he wants to be about his child, angle it that way. But as it is right now, it feels arrogant and self focused. Oh, so I will say this. I've seen a number of people in this space do this thing where they're talking about raising a child with something, right? They overwhelmingly make it about their kid all the time. It's it's basically like, here's a pretty picture of my kid, give me clicks give me likes, oh, by the way, and

Kelly 1:21:27
there's also only so much you can say about your own kid. Yeah. Also, like no matter how great they may be, I don't

Scott Benner 1:21:32
do that. I would I would venture to guess that 99% of the people listening this don't know what my daughter looks like. Yeah, yeah, I use my experience of helping her to come up with the ideas that I liked that I talked about, and I and I'm really sharing with you what worked for us, I can't share with you what worked for us without sharing how we did it. And so But moreover, this person just does not like my kid being they think my kids being used to make this thing. And she has nothing to do with this and almost no knowledge of it, to be perfectly honest with

Kelly 1:22:08
you. Speaking of though, are you gonna get her back on because I really enjoy those. Yeah,

Scott Benner 1:22:12
I'll harangue her to doing it once before she goes back to school. Okay,

Kelly 1:22:15
I remember seeing on the Facebook page like somebody will I don't know if it was the last day she's been on twice right? Yeah. I don't know if it was the last time or the time before but they had posted like oh, I cried so much listen to her tell this story while yada yada and I was like I laughed through the entire thing that did not make me the least bit emotional at all. Like

Scott Benner 1:22:42
she's hilarious really love her perspective. That was great. She's pretty cool. This one's like five years old. I once had a guy named Adam Brown on and I was like shot out of a cannon one day and I talked too much like I absolutely did so I can't like I said it later in another episode or even in that episode God I spoke way too much today I'm super sorry like that kind of thing. But this person says this is a one star review disturbing symbiotic relationship through his daughter's type one disturbing use those again set disturbing twice, they really want to make sure that you knew they were disturbed. It is concerning to me that he speaks as if he were the actual type one and not his daughter. That actually I have to be honest with you. It's just a that's a function of speech. Like when you say I when you're trying to make a point or or us or we or that kind of thing. I've actually been over the years very cognizant to try to break that it's not me thinking I have diabetes. It's just I'm trying to get stories out quickly. This is unhealthy in my opinion. It is also disturbing by the way she is now used to serving three times I get at the source it is also disturbing I struggled to block him out and here the guest and info presented this person wants me to go podcast starting go ahead and talk Kelly hobby back in an hour.

Kelly 1:23:57
That would be I would never have requested to be on Yeah,

Scott Benner 1:24:00
guess what you would have done you would have been like I'm Kelly my kid I don't know what to do. So I'm a long term very educated type one I can tell by how many times you use the word disturbing. I am always searching for the most current information he has great knowledge await he has great knowledgeable guests that I want to hear from but he won't stop talking about himself as the type one not as though I am not talking about myself as I've had diabetes. I have never done that. I don't do that. That is the thing. I think again might be a little more about their sensitivity than about what I did but that's fine.

Kelly 1:24:36
But I think that is very personal though because there are some times I'll see whether it's in a Facebook group or I'll just hear people talking and they'll say like, I don't remember like oh yeah, we we took a shot and I'm like no we didn't take a shot. No

Scott Benner 1:24:50
100% Like I know completely understand that but again, that's your sensitivity because you have diabetes you know everything that comes along with it like if I said you we went to KMart, you wouldn't be like no Oh, she went you sent your credit card like like you don't even like, yeah, if I bought something at Kmart, is Kmart even a thing anymore? Who knows? But I

Kelly 1:25:08
don't think it is. But I went when one of them was going out of sale or out of business I got so many good things on sale.

Scott Benner 1:25:15
I gotta tell you something a sporting goods store went out of business when I was in Georgia with my son playing baseball and I got a $70 Golf umbrella for $5 it's still like one of the best things that's ever happened

Kelly 1:25:25
to me. I like golf umbrellas are $70 Not

Scott Benner 1:25:29
when you pay five bucks for me to go in on a business sale. They're not. By the way, here's the end of this review. He even admits his ego gets in the way when interviewing Adam Brown. So if I joked and said something about like, I know, I'm just my ego got in the way. She's like, see? Proof? Yeah, I'm right. Lady to you. And by the way, I know it's one because of the name in the review. Not because I just assumed that only a woman would complain to me, because I'm not sure. But to her I say I don't care what you think. I am gonna give you one more. And then I'm gonna go because I have to I have to go. And we're actually gonna have to end up calling this interview like bad reviews or something like that.

Kelly 1:26:23
No, it's the very end. Well, what

Scott Benner 1:26:25
was the other one? Check? What do I say? Yeah, you said check. Please check. Please check me bad reviews all figured out.

Kelly 1:26:33
Checkmate for bad reviews. Like that's not bad.

Scott Benner 1:26:37
Good info, but bad host lots of good information, but the host never shuts up about himself and and is a complete egomaniac. You guys might not understand sarcasm. He is also an insufferable, elitist, and elitist. Kind of the best and the worst of most resources. So great information, great information, don't like that guy at all. By the way, I want to just say to this person, I love that you had to listen to me and you didn't like me because it just tickles me inside. But this guy's like my guinea one sees five and a half that I really hate this son of a bitch. Alright, I am not an elitist. There are some times I'm like, Oh, I can be judgy about things. And I complete egomaniac. I think that it's possible that I have a lot of self confidence. And I joke around around it. And that those things can get blended and come off that way. And that's fine. Like I it's fine for me the guy again, you know, I could scroll this thing. And just push stop and just go game changing five stars can't say enough about the game changing strategy Scott shares to help lower your or your loved ones no one sees like I can scroll, hit stop. I've been a type one diabetic for 32 years. And I've learned more from this podcast and for many doctors. So thank you very much. They are also from Canada, Russia, America, like Australia. These These reviews are from everywhere. overwhelmingly people like the podcast and I could find up I could easily find reviews of people who say this is not just my favorite diabetes podcast. This is my favorite podcast. I'm incredibly entertained by the show, but there's plenty of those too. I didn't read them. They're not as much fun because that would be egotistical. The other thing I just did is the opposite of egotistical, but I'm sure someone will find a way to say that I did this on purpose to prove I wasn't an egomaniac. So I look forward to that review. And then I will not pay attention to that one either. So good luck. Kelly, you were terrific. I was fantastic. I spoke way more than you did. And I'm sure that'll piss somebody off. But again, I'm not sure what to do. This is how it went. You know what I mean? You okay, Kelly? Everything's alright. I'm good. I'm just laughing the whole time while you were quiet just you quietly laughing under your breath? Yes. Because people are gonna think here's what somebody will say. See, he asked if she was good and she wasn't but she couldn't even bring herself to say

never left

snowflakes Okay, um, by the way, I don't mean that like a political way. I mean that in a way where I'm Judging You

You should all come to the northeast and and get a good dose of sarcasm so you could live your life in a more fun way. Kelly, thank you very much for doing this. I really appreciate Thank you. Yeah, good luck with your son Arden has been getting her diabetes supplies from us med for three years. You can as well, US med.com/juice box or call 888-721-1514 My thanks to us med for sponsoring this episode. And for being longtime sponsors of the Juicebox Podcast. There are links in the show notes and links at juicebox podcast.com. To us Med and all the sponsors. A huge thank you to one of today's sponsors, G voc glucagon, find out more about Chivo Capo pen at G Vogue glucagon.com forward slash juicebox. you spell that GVOKEGL You see ag o n.com. Forward slash Juicebox. Podcast lots of people with autoimmune seem to have trouble with their thyroid. And that's why I've made the defining thyroid series juicebox podcast.com. Click on defining thyroid the menu to find out more. A diabetes diagnosis comes with a lot of new terms, and you're not going to understand most of them. That's why we made the finding diabetes, go to juicebox podcast.com up into the menu and click on defining diabetes to find the series that will tell you what all of those words mean. Short, fun and informative. That's the finding diabetes. If you're not already subscribed or following in your favorite audio app, please take the time now to do that. It really helps the show and get those automatic downloads set up so you never miss an episode. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. The episode you just heard was professionally edited by wrong way recording. Wrong way recording.com

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