Scott Benner 8/20/24 Scott Benner 8/20/24

#1284 After Dark: Year From Hell

Eliza is the mom of a type 1 son. Warning: Sexual Assault discussed.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.

+ Click for EPISODE TRANSCRIPT

DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome to another episode of The juicebox podcast.

Well, today's episode is something else. This is Eliza. She's Australian and the mother of a child with type one diabetes. I'm gonna just tell you now about 19 minutes into this episode, it takes a really strange turn. So right around the 19 minute mark, maybe a little later, actually, maybe a few minutes later, there's gonna be talk of sexual assault, and I wanted to make you ready for that. Nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan if you're living with type one diabetes, the after dark collection from the juicebox podcast is the only place to hear the stories that no one else talks about, from drugs to depression, self harm, trauma, addiction and so much more. Go to juicebox podcast.com, up in the menu and click on after dark there, you'll see a full list of all of the after dark episodes. If you or somebody in your care has type one diabetes and you're a US resident, please go to T 1d exchange org slash juice box and complete the survey. When you do that, you're going to be supporting type one diabetes research and supporting the podcast. I think you're going to be helping yourself as well. You'll see when you get there. This episode of The juicebox podcast is sponsored by the Eversense CGM, an implantable six month sensor. Is what you get with Eversense, but you get so much more exceptional and consistent accuracy over six months and distinct on body vibe alerts when you're high or low on body vibe alerts. You don't even know what that means. Do you ever sense cgm.com/juicebox, go find out. This episode of The juicebox podcast is sponsored by us. Med, us. Med.com/juice, box, or call 888-721-1514, get your supplies the same way we do from us. Med, this show is sponsored today by the glucagon that my daughter carries, gvoke hypo pen. Find out more at gvoke glucagon. Com forward slash juicebox.

Eliza 2:25
Hi, I'm Eliza. I'm a mother of a type one who's seven, and I'm a musician and arty person. Generally,

Scott Benner 2:35
yeah, you're an arty person. Generally,

Eliza 2:39
yeah, I'm not gonna say that I'm an artist, because although I've been trained, I don't practice. So I'm not a working artist, but I work in the gallery. So nice.

Scott Benner 2:50
Where was your training?

Speaker 1 2:53
I went to university, which here is, you know, the highest form of education in Australia, which is where I'm based, in South Australia. And yeah, I I sort of started here and finished in Sydney. I lived there for a bit. And yeah, it's called a bachelor of visual arts, or fine art and design, or something can't remember, in you

Scott Benner 3:18
can't remember, that's beautiful. That's uplifting all the parents who are paying for college right now. How old are you, Eliza, that you don't remember exactly what your your degree is in 3939 There you go, kids. Takes 20 years to forget what it is you paid for.

Eliza 3:33
Gonna say, I forgot a lot more than just that. Yeah, my gosh, I baby. Brain, diabetes, brain, something. I'm going to blame those things, you know what? I mean, yeah, did

Scott Benner 3:45
you say I'm sorry your son daughter? Yeah,

Eliza 3:49
so Arthur is seven and a half, and he was diagnosed at five and a half. So two

Scott Benner 3:55
years for

Eliza 3:56
Arthur? Yeah, okay, two years in three days, exactly. So, yeah, two years.

Scott Benner 4:02
Was there any indication that this could happen, or did it come out of nowhere?

Eliza 4:08
Well, it wasn't Asian. It was shock to the whole family, but it presented pretty typically, and I suppose just enough for it to be weird, you know, like he'd never wet the bed, and was drinking, like a ton of water, and pretty much panic if I took his bottle away, like a water bottle, yeah, away from him. Like it was constant, constant, constant drinking. And then a couple of nights of wedding the bed, and we were like, straight to the local just the, you know, like the family doctor, and I just there for another reason, with him getting an asthma action plan, because he was just starting his first year of school. Said, look, there's this other thing. He's also like wetting the bed, and is just, I just want to rule out diabetes. I just need to make sure he doesn't have that. Oh,

Scott Benner 5:00
Eliza, why did you so first of all, I want to say this, good job. How do I mean this? I don't. I don't. This is not me coming down on other people, but I am shocked when people tell me that they're kids, like older children randomly started wetting the bed, and they didn't see that as a like, a crazy sign of something like, You know what I mean. But you did couple nights, wedding, the bed, right to the doctor. What made you, like, what do you know about diabetes that made you ask the question? Yeah,

Eliza 5:28
well, it wasn't on our radar. And I can't say that I knew much, but, like, I knew that. But also my husband, sorry, partner, fiance, whatever you want. I'll call him husband, because that's the easiest, not by any kind of religious or legal way. But in this country, a de facto husband is the same anyway. So whatever husband, his auntie actually has been diagnosed as a grown up at age about 50, okay, type one, um, but you know, we knew nothing about it like at the same time, because she was living in England, and we just heard about it and and then I think I was chatting to the school mums, you know, we were doing school pickup. I was literally one weekend we had our, you know, I had a few friends, and we were chatting with our little kids going into first week of school. How's everyone going? I'm like, Arthur is so tired and, like, so weird. He's just started wearing the bed and, like, one of them just looked at me and goes, and I'm like, and he's so thirsty, but it's so hot. It's summer, you know, that's what I was saying. But, you know, it's a bit of a worry. I was looking up the symptoms on Google. You know, as you do, diabetes is there, of course, but, you know, it's probably just anemia or, like, that was just, like, anything, but diabetes complete denial. But, oh, we're definitely going to get him chucked out. And, yeah, I'd booked an appointment for the following week.

Scott Benner 6:55
So my, my five year old, Bobby, is anemic. You know, I

Eliza 6:59
was just hoping for anything. Basically, I knew diabetes was the worst. And

Scott Benner 7:03
I was just like, I gotta tell you, if your five year old is anemic, they might have cancer. I think you should have been wishing for the diabetes.

Eliza 7:10
We know what that meant. Oh, senior and a child. You know what I mean. I just like, read, be just an iron deficiency or, you know?

Scott Benner 7:21
So what? That's fantastic. How quickly you got to the physician, and they diagnosed him right then and there, pretty

Eliza 7:26
much he was the the meter just read high, so they did a finger prick. And I said, Well, what does that mean? And she just looks at me and I'm like, should I call

Scott Benner 7:40
someone? Am I gonna start crying? What's happening? Yeah,

Eliza 7:43
yeah, yeah, it's diabetes. And I did start crying right then in the office and but, you know, probably silent is so that my kid wasn't freaking out. But then she goes just, you know, I'm, I'll forward this to the Children's Hospital, which is only a half hour drive or 40 minutes, and you're going to go there today. And I said, Well, we live five minutes from you can I pack a bag? And she said, Yes, that's okay. Since he's he's upright, he's talking, he's, you know, he's on his way, but he's not, aka, kind of thing. So they said it would be fine, but when he got there, he was definitely not great. He fell asleep sitting up. Was he in DKA? They never used the word. I only learned the word from your podcast, actually. Oh, isn't

Scott Benner 8:32
that interesting? Well, I

Eliza 8:34
learned more about it on the podcast. I suppose they may have mentioned it, but it flew over my head because it wasn't something I knew to ask like, was he in DKA? I never said he was. Remember the the first nurses who were doing the tests and putting a drip in him, or whatever they were doing, because don't ask me, it's all a blur. She said, Oh, wow, if ketones are 6.1 I usually can smell them when they're that high, so smell them. They said, Oh, that the kids like, oh, the breath smells sweet, or, I don't know, yeah, I just thought that was an interesting thing that always stuck in my brain. But then they were all just sort of praising us for catching it before it got bad. And they hinted that it would have gotten bad within hours or days. Really bad, good for you. So they were just really pleased, yeah, so it was, yeah.

Scott Benner 9:23
Did that make you feel good by any chance? I mean, not good, like a party, but like, was there, you know? Yeah,

Eliza 9:29
somewhat, Somewhat, yeah, for sure, it was like we felt like we'd at least done what we could, even though, of course, I could have caught it earlier. My God, I look back and he was lethargic and tired, but I felt like two months, maybe Okay, three months even. So I can look back at photos and remember a day that he fell asleep weirdly on the beach, you know, before Christmas, weird, some of those sort of things, and then just thinking, I should have picked up early in the La, la, la,

Scott Benner 9:58
I'm sure you did a good. Job. It's hard we figured it out, but Arden was just about dead when we figured it out. So if you take insulin or so Fauci, you are at risk for your blood sugar going too low. You need a safety net when it matters most, be ready with G, VO hypo pen. My daughter carries GE, voc, hypo pen everywhere she goes, because it's a ready to use rescue pen for treating very low blood sugar in people with diabetes ages two and above that. I trust low blood sugar emergencies can happen unexpectedly and they demand quick action. Luckily, jivo kypo pen can be administered in two simple steps, even by yourself in certain situations. Show those around you where you store GEVO kypo pen and how to use it. They need to know how to use jivo kypo pen before an emergency situation happens. Learn more about why GEVO kypo Pen is in ardent diabetes toolkit at gvoke, glucagon.com/juicebox, gvoke shouldn't be used if you have a tumor in the gland on the top of your kidneys called a pheochromocytoma, or if you have a tumor in your pancreas called an insulinoma, visit gvoke, glucagon.com/risk, for safety information. This episode of The juicebox podcast is sponsored by the ever since CGM. Ever since cgm.com/juicebox, the Eversense CGM is the only long term CGM with six months of real time glucose readings giving you more convenience, confidence and flexibility. And you didn't hear me wrong. I didn't say 14 days. I said six months. So if you're tired of changing your CGM sensor every week, you're tired of it falling off, or the adhesive not lasting as long as it should, or the sensor failing before the time is up. If you're tired of all that, you really owe it to yourself to try the Eversense CGM. Eversense cgm.com. Dot com, slash juicebox. I'm here to tell you that if the hassle of changing your sensors multiple times a month is just more than you want to deal with, if you're tired of things falling off and not sticking, or sticking too much, or having to carry around a whole bunch of extra supplies in case something does fall off, then taking a few minutes to check out. Ever since cgm.com/juice box might be the right thing for you. When you use my link, you're supporting the production of the podcast and helping to keep it free and plentiful. Ever since cgm.com/juice box, I don't know how you guys order your diabetes supplies, like CGM pumps and testing equipment, but at our house, we use us Med, and I'm gonna walk you through the entire process right now. I'm looking at the email from us med. It says it's time to refill your prescription, dear Arden, please click the button below to place your next order, then you click the button that was it. Two days later, I got this email, thank you for your order from us. Med. We wanted to let you know that your order, and it gives you an order number was shipped via UPS ground. You can track your package at any time using the link below. And then there was a link, and then it showed up at our house. Now I'm going to walk you through the entire chain of events. On the 29th which was the Saturday I clicked on the email. On that Monday, the first, I got an email that said the order had been sent four days later. On the fifth, the package arrived. If you can do it easier than that, you go get it. But if you can't, us, med.com/juice, box or call 888-721-1514, get started today with us. Med, get your diabetes supplies the same way we do. It's difficult. You know, I think you did a great job. So, you know, that's okay. How long did they keep them in the hospital? They call it. Is it in hospital in Australia, or is that a British thing? We

Unknown Speaker 14:07
use of the hospital,

Scott Benner 14:11
good for you, way to come around to this time. So how long did they keep you there? Yeah,

Eliza 14:16
we're still covid. So we were sorry, that's not a real

Scott Benner 14:20
No, I don't know. I just wrote it down. I was like, covid. How come no one's ever said that before. Fantastic.

Eliza 14:26
I use a lot of made up covid. That's definitely a thing that was happening in the hospital, still not as strict as when I'd had my daughter, which was the year that covid like 2020, as well. So I've got a three year old girl as well, but so

Scott Benner 14:44
I'm sorry, Arthur was five and a half and you had a younger child as well.

Eliza 14:47
Yeah, I was breastfeeding a toddler at the time, one year old. That sounds fun. Two year old. Oh, that was so much fun. Sleep was yeah, let's not go there and

Scott Benner 14:58
teach the kid to do something you gotta be like. Look, latch on and then hold this meter. Okay, when I bring the finger towards it, you touch this. This kid's not helping at all. Come on, just hold the meter. Gonna do something?

Eliza 15:11
She like to grab it. You know,

Unknown Speaker 15:15
it's amazing.

Eliza 15:18
What's this cricket? No,

Scott Benner 15:19
I saw a photo the other day of it was like, a meme, or some it was a breastfeeding meme. God knows why I saw it, but the lady's, like, trying to breastfeed the kid. The kids, like, half upside down and got her heel, like, in the lady's eye socket, you know? And I'm like, oh, there's a lot going on here, yeah?

Eliza 15:35
Co sleeping as well. So at least they were all in the same kind of room vicinity, you don't have to walk too far. Yeah, yeah. I kept it simple. I might, you know what? I'm just gonna stay in there until I'm comfortable leaving the diabetes child alone. Now, like that's gonna stay

Scott Benner 15:53
Jesus. So, I mean, there's a boy somewhere. So do you guys learn together, or do you take the reins? How does it go? Well,

Eliza 15:59
Ben and he was allowed in for the education sessions. We were only allowed one at a time for the bedside care. It was three days. I think we were in. You asked before, but the education sessions were meant to be three business days long. I think she smashed it out in one day, because we're educated. Is that bad, that naughty? She's like, Oh, good. You know what a car is? Well, that is going to make this for you boy.

Scott Benner 16:29
That's got to be disheartening, doesn't it? Wait, you've heard of fractions.

Eliza 16:37
No, she was sweet and and we understood. Because, I mean, she's gotta deal with people whose language is other than English as the first language, and then there's just all kinds of levels of education and knowledge of food. And so yeah, she found us very easy. My partner's like a cook, a chef, so food wasn't something we were scared of learning about we didn't have to change his diet. We just learned to count the carbs and move on.

Scott Benner 17:08
Yeah. Well, good for you. So you leave with what kind of technology in Australia?

Eliza 17:14
Oh, yeah, I knew that impression was coming, and we left with unit click pens. So yeah, pens, a couple of meters. Had Novo rapid was the short acting insulin, and I had Levi Mia was the long acting split over two doses, like morning and evening, and we had some like, what are they called, ratio cards, or like a thing, whatever they're called. And we were bravely and, of course, I regret this. We were offered the Dexcom on day two, like in the Education meeting, she would have put it on him,

Scott Benner 18:01
you said, No, thank you. I don't need that. You won't be sticking that to my child. He's not a robot. Was any of that going through your head?

Eliza 18:09
Not quite a little bit of fear. We let her put the Libra two on so we had a couple of options, and we thought it was less intrusive, Flash stressful to not to not, kind of have it just like, literally every five minutes giving us a reading. And for some reason, we thought that that was going to be a bad thing. Two weeks later, we we got the Dexcom. Hi,

Scott Benner 18:31
hi, we made a mistake. We're calling back.

Eliza 18:37
We had a two week appointment, checkup, follow up anyway, in the hospital, and, yeah, they were great. I mean, I think it was a very like, I was very happy with the care and the experience. But since learning more, thanks to you, I've like, see a lot of flaws, even though I know it's better than a lot of people in other parts of the

Scott Benner 18:57
world, if you know what I mean. So I wake up every morning to I actually it's right in front of me. Now I haven't done it yet, because this is earlier than by the way, it's late at night for you, and I'm like, why are we doing this so early?

Eliza 19:10
What time is it for you? It's 8am

Scott Benner 19:14
poor thing. I just don't usually record at eight. I like to, I like to be awake before I do it. I'm sorry. I'm being mean. No, no, it's okay. I don't feel attacked. But usually I wake up in the morning and there's, like, this morning, there 17 new people since, like, I went I hate to tell you my I didn't get a lot of sleep last night, so I went to sleep at like, three o'clock. I don't know why. Actually, I do know why I was up late working, but I don't like people feeling bad for me, because then I get notes. You're like, Scott, take care of yourself. You're going to burn out. That's very sweet, but I'm okay. So I went to bed at three because I was working late. I knew I had to get up early for you. So my alarm went off at like, 745 I have to admit, when it went off, or, uh, 645 I was like, Oh, what am I doing? But then I open up like, you know, it gets. Work done. And for me, you know, part of my work is checking new people wanting to come into the Facebook group and approving their entries if they got stuck somehow and the automation didn't get them through. And every morning, there's five or six people from Australia. Every morning, I'm

Eliza 20:16
impressed. I'm pretty impressed with that. I've definitely got a few to you.

Scott Benner 20:21
I appreciate it, but it freaks me out, because I'm like, how do they know about this? But then I guess, how does somebody in Montana know about it? But you know what I mean, so it's a

Eliza 20:29
big it's a big world. Oh, yeah, how did I find so another weird fact was that one of my son's friends in school. His mother is a type one since she was 21 so that I had in my brain. And I think she was there when I had this initial chat with the mums. And she said, go onto some support pages on Facebook. And she sent you the link of a couple in Australia from one of those, there were people harping on about yours, the juicebox. And I don't remember exactly which comment or which page, but one of them would have mentioned it. And I probably would have got a few people repeated, repeated, repeated people saying you it sounds like you want to listen, or it sounds like you, you know, you would really benefit from this episode or this podcast, or they were talking about it, man, like they were all

Scott Benner 21:28
right, that's what I need, people. Well, thank you everyone. That's how it works. I know I say it a lot, but yeah, I have almost no control over the podcast growing. It's you guys. So I really appreciate that. I'm

Eliza 21:38
doing the same. I've got some hardcore I've got a hardcore fan of yours now he's done from number one. And I'm like, okay, that's

Scott Benner 21:46
what we need, because of appropriate period. When I hear that, I hear it, oh, that's like, another 1000 downloads this year. Excellent.

Eliza 21:53
Needy for those downloads, aren't you?

Scott Benner 21:57
Listen if you're a podcaster, and I can't believe I'm a podcaster. So ridiculous. Woke

Eliza 22:03
man, oh my God. Listen,

Scott Benner 22:07
if you do this for a hobby, that's lovely, but if you do this and it's paying your bills, then and you tell me you're not a whore to those downloads, then I say you're foolish.

Eliza 22:17
I agree. I agree. I agree not 100% yet. I haven't helping you Well, I

Scott Benner 22:24
appreciate that, and I don't mean I'm like, I'm just making it for numbers so I can sell ads like, that's not the point. I actually think about it backwards. I had a business meeting yesterday about a possible new advertiser, and it's an advertisement to spread the word about something that's really valuable for people with type one diabetes, and I want to do it, and I'm laying out what the show is, but they need certain numbers, or they're not going to be involved. Like, I'm laying it all out. And she got what did the one of the there was eight people in the meeting, which seemed really unnecessary, if I'm being honest, but the one person said, Jesus. Like, you're almost aggressive about it. I was like, I've had this podcast for 10 years. You think it's because I sit here and just hope it works out. I was like, well, they're

Eliza 23:04
clearly, you know, used to a much chill vibe from their podcast. Can

Scott Benner 23:08
I say they were New York? And I got a lot of that New York vibe from everybody, and, like, no shade. But I think everyone knows what I mean, you know, I was like, All right, everybody was a little too cool for the room. Nobody wanted to be excited about anything. You know, I was not professional enough or pretending to be professional enough. Whatever it is people do. I have no ability to not be myself. So

Eliza 23:32
that's why I like you so much, Scott, that's why I like your podcast. So

Scott Benner 23:36
that's nice of you. But in a meeting with eight people from a media buying agency. It doesn't look good. I don't think when I'm just like, you know, I'm like, well, listen, this is going to be a tough sell. You know, what you're trying to do is not easy to get people to understand. But I said, if I can't do it, the good news is nobody else can. They were like, what? So anyway, I don't know how it went.

Eliza 23:58
It's like I went to hearing new ads. Now, if they, you know, yeah,

Scott Benner 24:03
I would tell you what it's for, because I'm going to be like, I'll be proud if, if it comes on as an advertiser. But now that I talked about them, I don't want to say what it was. So, no,

Eliza 24:12
just in case, don't give them anything to be insulted. Yeah,

Scott Benner 24:16
I felt a little judged, but that's okay. I think

Eliza 24:19
you a good judge of what you should and shouldn't advertise. I think you've proven that I'm

Scott Benner 24:25
getting there. So I don't want to take a big left turn, but I'm looking at your notes, and there's a couple of things you wanted to highlight, and the one thing you know that, um, one of these things is not like the other. What was that Sesame Street? Or yeah, there's just one line. It's like a line item in your list where I'm like, I don't understand how this goes with everything else, but it's so serious. Okay, okay. Do you want to skip it or tell me

Eliza 24:51
I'm not looking at the notes, so why don't you read it out? Well, that's gonna be shocking. The line. Well,

Scott Benner 24:57
here let me, let me tell you so that you said. Struggle there was that I had to advocate for breast feeding and nursing while I was caring for a type one not getting any sleep. I want to talk about hospital care in Australia. I want to give other people hope and a positive outlook, but then it says dealing with mental health issues and abuse, and you indicate that it's sexual abuse under the same roof while also getting grips on diabetes care. I don't understand that

Eliza 25:23
that's something we now associate with the diabetes diagnosis year, because, so that's what 2022 so that's our year from hell. We don't the covid year is like a walk in the park that was nothing here in Adelaide, which was like famously low lockdown restrictions and all that. Yeah, sadly, my stepdaughter, so my partner, has a well, she's now 18. She was 16 at the time, and it was probably three months past diagnosis, still very much in survival mode, still very much struggling, lot of crying, lot of anxiety around everything and eating and, you know, having to inject your child. And Ben was already a very emotional person. We both are, like highly emotional, highly kind of passionate, creative types, and just extremely, like, high, you know, high emotion heart, like on our sleeves, kind of like we would cry about the diabetes, and then he goes UK for a grandparent's funeral, and like, he's walking in the door and his 16 year old breaks down and tells him that she's in a relationship and she's being raped by her boyfriend, who she's been trying to dump for months, and that he's been letting himself in with a key to her to our house and letting himself into her bedroom and lacing her weed with, I don't even know what I but something like Xanax or something comes into my mind, like something that shouldn't be smoked was being put in, like vape. It was like another bomb house. Oh, my God. And then ricocheted through like it was horrible.

Scott Benner 27:22
You know, I'm so sorry. That's, that's horrible is not a good enough word. These, and these two are they were dating.

Eliza 27:29
They had been dating for nearly two years, and he'd been at in our family home and fully at birthdays, and we try to include him. And, you know, they'd been high school sweet arts for a while came out that it wasn't the first time that she'd been abused. And she'd also been abused at 13, and the roller coaster just kept, like, going, man, like,

Scott Benner 28:00
yeah, what does that do to every to the house? I mean, she's obviously getting it off her chest, which is terrific, and, you know, trying to move forward from it, yeah. But does your, does your partner like? I mean, is there a dead kid in your backyard? Now, anything like that,

Eliza 28:15
nearly, yeah, I would say that it could have happened. Was certainly something he wanted to do, which he was open to me about that he said he didn't know if he bumped into this kid at the mall, that he wouldn't just bash him to death, basically, with his bare hands, because his baby was like, Yeah, violated and so hurt in such a horrible way he was in two years, and some normality is now, like back with him. How is she so we've been and she, she's Oh, she was bad for a long time, but I almost thought it was better, because we didn't know what was going on, but she was like cutting, self harming for years, since about 13, and sketch such bad mental health, like, well, she was diagnosing herself. Well, she's been doing that since she was 13. But really, I mean, from my perspective, it's that she's just, you know, been traumatized and abused, and so she's, like, got Post Traumatic Stress Disorder, or some like, and, but she's diagnosing herself with, oh, I'm BPD. What's that? Borderline Personality Disorder? Because I've got all those symptoms. I'm depressed, I'm suicidal, I think of death. I idolize, you know, ideation. So she was going through a horrible time, and it took a while to come out of that. She thinks she's in a good place now, though. So that is

Scott Benner 29:44
I'm glad. Did you all not know? I guess you didn't know about that from the time she was 13.

Eliza 29:49
No, we just knew that things got really horrible. But we actually just thought it was like teen banks, yeah,

Scott Benner 29:56
so I'm sorry. So you're, I don't know what to call him, the boy. He. The guy, the husband, the partner. He um, you messed me up by calling him seven things at the beginning. And now I don't know what to say, but he flies to wash to England for a grandparent's funeral. Comes home to you breastfeeding and helping a newly diagnosed five year old. And then this comes

Eliza 30:17
home for, yeah, three weeks? Was it three weeks?

Scott Benner 30:21
Oh my gosh. Then this comes out. It's all piled on top of each other. He's having murderous thoughts, which I I applaud, by the way, do you go to the police? How do you handle that? We

Eliza 30:32
don't. But he calls the police, but it doesn't mean anything unless she makes a statement, which she hasn't still, but she still might, but I don't think that'll have a lot of bearing. She was seeing a psychologist at the time, and, you know, so, you know, Ben called the psychologist and asked for her because she was quite a sort of well known one in the area for this type of help, like with teens going through abuse, like victims and things. So she was already seeing someone who probably knew before us to be honest about what had been happening. And then they said, to try a crisis center, some mixed advice on what to do to help everyone. But in terms of legality, there was really, there's no charges. He's just out there doing whatever he wants. Do you think he's done it to other people prior? Well, he was dealing, dealing drugs in the school. This is a Catholic school, by the way. We're not religious, but her, her her grandparents were paying and they are regret,

regret, regret, go to the local school. That's what we should have done.

There is nothing to do now. It's all in the past. But what was the question?

Scott Benner 31:53
No, I just didn't know if he if you had found out that this was something he was doing to other people prior.

Eliza 31:59
Found out anything. Phone calls were made very fast to the parents, though, by my partner, they were obviously pretty skeptical for a while, but there were some dubious texts and screenshots that his daughter had so she he sent those on as some sort of evidence. I don't think much would hold up in court, because she was also actually drugged for so much of it, her memory is so foggy. She just knows that she'd been violated, if you know what I mean, like, and she felt violated, and he got stalky and stuff, but he denies it all from the get go, denied everything. So I have to

Scott Benner 32:41
tell you, like, there's a lot of things I didn't expect when I started a diabetes podcast, but that I have had three separate conversations in the last four weeks about, I tried not to use the word right, but about sexual assault, it almost feels commonplace sometimes, you know? And I just, and it's such, I mean, it's such, I mean, it's another invisible thing, you know, sort of, it's funny. In the beginning of this episode, before I knew this was going to come up, I was like, Oh, I'm going to call this episode Arthur and the invisible illness. I was like, because of the movie, it's going to be catchy. We're going to love it. And then, as you're telling this story, I'm like, this is an invisible thing too. But I of course, am not going to make a title out of it. There's so many things happening to people all the time, all over the place that you just, you're just unaware of, you know, and then you're, you know, your whole family probably gets thrown into that cauldron with her and her, I'm gonna, I guess, her mental struggles after this. Now you're watching her go through it, and him go through it. He's got this realization about his daughter and all this harm. There's your son. Yeah, type one, the

Eliza 33:47
injustice, the injustice. He's, he he's got, so he's, he's now, so he's jet lagged. He's arrived. He's jet lagged. He's been thrown into trauma, and he's now struggling to even, like, do basic human functions for about a year. Yeah. So he's so consumed that helping with diabetes has only started, like, a year after that, so and doing a lot of it on just my own, really. So, yeah, I went miles ahead, yeah. And

Scott Benner 34:20
I would imagine, even though you would understand his predicament, you probably begin to resent that at some point as well. I mean, resent might be a strong word, but you know what? I mean?

Eliza 34:30
No, it's not. It's not. I couldn't help myself. I was struggling. You know, it was hard. Three Weeks was hard, and then it came back. It was almost worth I had this whole other thing that was there, like, who needed caring for, who was trying not to have a breakdown, who had many, in fact, threatened to punch my dad in over Christmas, and he's 80 in his own home. He threatened to, oh, FM. And she had in and, you know, like, just completely off his rocker, like, this person that I'm apparently having, you know, got two kids with, and spend the most of my life with, was just this. Had no control, couldn't anything together. It was just, yeah,

Scott Benner 35:17
I would imagine when the person you have two kids with says, hey, it's Christmas. We should beat up your 80 year old father. You're probably like, Uh oh, darn it cutting.

Eliza 35:28
I nearly didn't stay with through many of this. Any thoughts of escape? And I had strategy. I have strategies in place to escape, and I also had fear of him. So out first, there were things thrown at times. Alcohol was being used to self medicate, as well as weed, and I didn't always feel safe. And my therapist said that she didn't think the kids were safe, and was trying to make me lay down some pretty thick, you know, rules and saying you need to, like, go live somewhere else three days a week to give us a break kind of thing.

Scott Benner 36:09
Yeah, it sounds like it was on the edge, but now this is a couple years later. Do you characterize like anything in your life, like it was before, or has everything changed?

Eliza 36:19
I feel like I'm still not really recovered seeing this other side of my partner. I feel like it's still difficult, because any stress that comes up, it still sparks a lot of he's always had a bit of anger management problems, so I suppose it's just it's too easy to trigger things. I'm like, such a committer, like, I'm really committed and like, people think, like, maybe I shouldn't commit to some people that I've committed to in the past.

Scott Benner 36:52
You know, I know people personally who are going through similar things, and there's part of me that thinks like, look at them like working hard to hold it together, and like to fix things and, you know, turn the lights back on, come out the other side, that kind of stuff. And then there is times where you're like, uh, maybe you ought to just cut bait and run, you know. But I also am from a divorced family, and I grew up believing that I wish my parents would have done something different and tried something different, because I don't see we didn't trade a bad thing for a good thing. We traded a bad thing for a different bad thing. Yeah,

Eliza 37:33
yeah. Honestly, I listened intently to interviews like with Erica and like the co parenting and the one about the divorcing or what to do and when, like, her last statement was basically, if you can avoid it, do you know, like the separating, and she said that, Like, quite strongly in one of those

Scott Benner 38:01
episodes, yeah, that that was her, right, not me, that said that that was

Eliza 38:05
her, yeah, that was her. And it right at a time that I was, like, really, like, a precipice about it, you know what I mean? And, and I like, okay, like, it deserves more time. Like, I'm, I'm, like, hearing messages to like, I should, I should try harder, or I should be more patient. I'm so freaking intolerant. Like, oh my god, yeah, yeah, I put up with so much, and that's what my friends don't like to see some of them. They're just like, you put up with too much. It's like another child for you. You don't need to have to look after everyone else's problems in the house. And

Scott Benner 38:39
does he go to therapy?

Eliza 38:42
Uh, sporadically, yeah,

Scott Benner 38:44
yeah, you might. Maybe you should make that a more like weekly thing, you know, and say, does he know what his issues are? Like, if, if, if he was here right now, and I said, Yeah, you have anger issues. And Bob, he'd go, I know. Or he'd be like, No, I don't.

Eliza 38:57
He would say, I know.

Scott Benner 38:59
Okay, well then, yeah, then work harder at getting rid of it, because this is going to ruin our relationship. Like, have you ever told him that?

Eliza 39:06
Yeah, confrontation is my favorite thing. We've had some big talks, but I don't like to bring things up late, but he has a lot of goals to always be improving, like when he's in a good place. So right now he's in a good place. We visited the family in the UK for Christmas. That trip was a nightmare. It was very triggering for him. Don't want to talk about that. La, la la. Traumatic for me, looking after the kids again the whole time. But it was like, la, la, la, everything's great. And I'm like, that was so hard. I'm recovering.

It's amazing. Now we're home. Here's a pump. I'm gonna get on a health kick. I'm gonna lose all this weight. I'm gonna, I'm gonna, yeah, deal with my shit, you know, like, and I'm like, Uh huh, I

Scott Benner 39:59
had somebody. Approached me, uh, recently, and I mean, I've, I've been very honest about it on the podcast, but I've used a GLP to lose weight, and I've lost like, 50 pounds. So I saw somebody listening, yeah, thank you. So I saw somebody the other day who I hadn't seen in a while, and they were like, Oh my God. Like, it's such a like, You look terrific. And I was like, thank you. They said, how much have you lost? And I said, about 50 pounds. And they were like, No, I don't like, that's not possible. So I have to have this same conversation with people over and over again that I weighed a lot more than I looked like I

Eliza 40:32
weighed. What is that in kilos? Sorry, hold

Scott Benner 40:36
on a second. You're gonna make me use the internet there. Hold on. Hold on, 50 pounds in kilos? Is that kg? Is that? What that is? Kg? 22.6 kilograms is 50 pounds. Okay, but

Eliza 40:50
what were you to start with? In kg? I

Scott Benner 40:52
know I'm gonna give it to you. Hold on a second. Thank you. Very, very demanding. 106.50

Eliza 41:00
it's very similar, okay,

Scott Benner 41:01
and so I'm, I'm five nine, and I'm probably 6570 pounds over the obese limit as far as the healthcare standards go. Now, when you say that to people, they go, Oh, those are ridiculous. Guess what? They're kind of not. Because I was 235 I stood in front of a doctor, and I said, I have to lose weight. I'm gonna die. And she goes to me, lose weight. What do you mean? And like, I had to stand up in the office. I took my sweatshirt off. I was like, How much do you think I weigh? And she said, 175 pounds, which would have been 79 kilos. So she assumed I weighed she assumed I weighed 79 when I was 106 because I just, you know, when you hear people say, Oh, they carry the weight well. But I don't even think that's it. I think that's bullshit. Now that I, like have lived through this weight loss of the last year, I think what happens is, first of all, it's like that slow drip. You don't, you know, the the old thing where you like, you know, you can put a frog in a pot of cold water and heat it up slowly, and it'll sit there and happily boil to death. But, you know, so lovely. Yeah, you just don't keep the analogy. No, thank you. That's actually true. But if you throw the same frog into boiling water, it'll jump right out. If you take somebody towards something slowly enough, they'll become used to it as they go, and they won't rebel against it, which is probably an euphemism for your relationship. But let's get past that. And so no one knows how fat I am. I don't know I don't see it when I look in the mirror. People who look at me don't know that you were Thank you. Thank you. And so, you know, so this person's like, well, you know, oh gosh, like, I need to lose weight, like that. And I said you should call your doctor and see if your insurance covers this. And the person says, I know what to do. And I'm like, You know what to do, to call the doctor like I thought we were talking about a GLP medication. And they say, no, no. Like, I know what to do, how to eat and exercise to get rid of this. And I said, Are you over 50 years old? And they said, Yeah. And I'm like, How come you haven't done it for the last 30 years? And she looks back at me, and I went, you're not going to do it. I wasn't going to do it. You're not going to do it. It's not going to happen. I know you know how that's meaningless. You're gonna have a heart attack. I was like, do it or don't it's up to you. You know what I mean. But like, don't stand here and go, Oh, everything's okay, because everything's not okay. I've lost. I weigh 100 this morning. I was 187 so hold on, 90 727. 17. Yeah, I've I've lost, I'm sorry, I counted on my fingers by 10s, and you can go yourself if you don't like it, okay,

Eliza 43:49
manually trying to convert that to CG, to me, I'm like, Oh, my God,

Scott Benner 43:54
I don't have that kind of prowess. It's, I thought you knew I was counting on my fingers. So, um, so, so I've lost 4048, pounds, and I'm telling you right now, it's not body dysmorphia, it's I'm still fat, like I have what I'm guessing is 15 more pounds to lose, but to be perfectly honest with you, it could be more. I have no idea. And so, like, and I learned that I'm the worst judge of it, because at 235 I thought I just need to lose 20 pounds.

Eliza 44:22
So your aim? You are aiming for that 170 ish, no

Scott Benner 44:27
aiming. I am aiming not to be able to grab a handful of fat on me anywhere. That's what I'm eating.

Eliza 44:34
Okay, go. You. I don't know about this drug only

Scott Benner 44:38
Nicki Minaj needs that because she's making a living off her ass, but I'm not so, like, you know, I don't want to be able to grab a handful of fat somewhere, like, that's when I'll be okay. That's when I'll know I'm I'm healthy. It's a good goal. Yeah, that's all. I don't care about the numbers. It could be two more pounds. It'd be fine with me. I don't care about the weight.

Eliza 44:56
I need to drink that, but we've both got it so we're on. On, like, a health kick, good for you, even my son, but he started putting on a bit too much weight, I'd say over just like the holidays. I'm just like, oh, is it insulin? Like, is it part of the fact that he's taking this, like, artificial insulin? Is it? Is it causing weight gain? Certainly seems to make him hungry, so hungry it could

Scott Benner 45:22
be also there's that whole thing about Amylin, which I still have to go into, but type ones and hunger are not uncommon. Yeah, I

Eliza 45:31
wanted to ask you about that. Yeah.

Scott Benner 45:33
Amylin is a 37 amino acid peptide hormone that is CO secreted with insulin by the pancreatic beta cells in response to nutrition stimulus. It is deficient in patients with type one diabetes and elevated in patients with early type two diabetes. So that's just a thing like, that's true. You know, they used to, back in the day, give type one's Amylin, and they just not give it to them. I gotta remember the old heads that have been on here and talked about it. Was in one of the insulins. Wow. And it's not anymore. And so interesting. I mean, listen, Arden started using just a quarter of a milligram of GLP weekly, and she's probably lost 15 pounds. And you wouldn't look at her and think Arden needed to lose weight, but she had weight to lose, and it came off.

Eliza 46:25
Any GOP

Scott Benner 46:28
sponsors yet? No, you know, pharma companies don't sponsor things. It's device manufacturers. Pharma companies don't, yeah, they should, because I lost 48 pounds. Talk

Eliza 46:40
about it a lot like you really are doing well on it. Like, I always want to know more. I haven't googled it yet. Like, what is this? Is it safe? Is it natural? Like, what is this?

Scott Benner 46:51
You know what? You know what's less safe than this a heart attack when I'm 55 Yeah,

Eliza 46:56
yeah.

Scott Benner 46:57
I'm not pushing it. I think it's coming. Like, I think you're gonna see it widespread. Like, wait till you hear some of the episodes that are coming up with people type ones using it, and their insulin needs are dropping significantly. My daughter's using a lot less insulin, and she's not even on what they would consider a therapeutic dose of it. She's taking a little tiny bit of it. So,

Eliza 47:21
oh, I love it. This is one of the best things about your podcast. And what like you just, just gather this, like, wealth of kind of what's coming. And I just love the hope that all the technology and the advances and listening to that part of it's so good. And I'm glad I've just built Luke. I just built it. Oh, good. I just finished. Literally, finished it, like two nights ago, put it on his phone. We haven't activated it yet, and I want to build caregiver first. And, you know, like we're about to start that process, because we'd be on the dash, yeah, with Bs for a year. Oh, not FIAs for a year, but on the on the dash pods for a year and yeah, wouldn't consider any tube pump. I must have started listening to your podcast very early on. Yeah, it must have been very, very soon into diagnosis, because I can't remember not having it as this, like Guiding Light, like, as soon as I started listening to those pro tips, I was then I was asking all these questions. Oh, that's amazing. I'm so happy to be telling

Scott Benner 48:25
I'm very happy that that it helps. I actually, there's a, there's a post in the Facebook group right now. It's just people who are like, just sharing their story about like, I put up the post. I was like, hey, if the group's been valuable to you? Can you let me know how? Because every once in a while I need to, like, reorient myself. This is gonna sound weird, or I don't know, like I'm up my own ass, but every once in a while I need to reorient myself with what it is I do, like who I am in, like, in this equation between you guys listening and me. Do you know what I mean? Because, like, it can get on cruise control sometimes, like, I make the podcast and I do this and I do that, like, every once in a while, like, I gotta remind myself that it's helping people, you know, because I get lost in the making it. Sometimes

Eliza 49:13
it is very much helping people. Don't ever forget it. No, I

Scott Benner 49:17
can't, because the messages that got put up are just, you've got them,

Eliza 49:20
you've got them in stone. Now, oh, it's just one etched.

Scott Benner 49:24
I can't, you know, I read every one of them. They're all really impactful and interesting. But it's sometimes hard to believe that. It's hard to believe they're talking about me that makes sense. You know what I mean? Like, I try to do that thing. Have you ever heard presidents talk about this? Like there's a distinction between me and the office. Like, when I'm doing something difficult, I like to think of it as the Office of the President doing it, not me. I understand, yeah, my brain works that way, not for the same reason. Like, I just try to keep it like the show, The Show helps people, because, if not, then I'm some douche. Bag running around, going, how did I help you? Like, you know, like, tell me what. Tell me how great I am. And I don't mean that, and I don't feel that. I don't need that. I do need to be reminded bigger

Eliza 50:09
than you. Yeah, it is now. It really is not just you, is it? Because, I mean, not only do you have amazing guests like Jenny and Erica and all these series that you've put together with your helpers like Isabel and all the nicos and all the people on Facebook, but you've got like, people have been living, living with it, and it's just a wealth of knowledge, and I just couldn't imagine life without it, and I just keep preaching it to everyone.

Scott Benner 50:34
Oh, I'm glad. I'm so happy it works for you, and you're not wrong, by the way. It's like I took it to a certain level, and then adding the Facebook group was another dimension. And then it got so big that I couldn't foster it really, like I was, it was me, like I would get on every day and just be like, I'd run through and answer as many questions as I could, and like, point people to episodes of the podcast. And like, it was like I was working like, 24 hours a day, and then we just added a couple of like group experts. And, you know, a moderator, Isabelle, terrific, and the group experts are amazing. There's at this point, too many of them to list right now, and, yeah, they're just people donating their time who are jumping into like threads and being like, Hey, I see your question. You should try this episode or this series will help with that, or like that kind of thing. And then, well,

Eliza 51:24
you've been referred to as a cult by my partner, and he was in his dark moment. You know that diabetes cult? You know

Scott Benner 51:36
he would have punched me if I he was

Eliza 51:39
ready to kill anyone? Yeah,

Scott Benner 51:43
I get invited to Australia. Every once in a while. I didn't know I was going to get beat up when I

Eliza 51:49
got there if I went. Love barrel of laughs and his dark hours. But, um, no, he sees how it's helped Arthur and his like a 1c and the hospital just keep telling him that I'm doing an amazing job, so I just go with that like the evidence is there. It's not a cult.

Scott Benner 52:07
These people say otherwise, and you seem angry, so we're not listening to you. Hey, Eliza, what's he angry about? Something happened to him in his childhood.

Eliza 52:18
Look, I think there's abandonment issues, yeah, yeah. Some abandonment stuff with his parents. I don't think He's forgiving them still, so I think he's hold I think he's having trouble with forgiving. Okay, we talk about it. I talk about with his mom. It's all quite open. We have talked about a lot of it as as something that he probably should look at but because he also grew up in a big, rough city. It's like growing up in New York, grew up in London, and it was not a well to do suburb. It was a rough suburb, and it was rough, and he got beat up, and he's had his Stallman from him, and kids down the street would steal his toys, and he was the only kid on the street who had birthday parties and, you know, like, so I think he had just a bit of a rough time. And because of the sensitive nature of his, you know, his genes, or genetic makeup, has caused him to become who he is today. I mean, not everyone. Turns out, you always like to think about that nature, nurture, how much is genes and how much is your environment making

Scott Benner 53:27
you Yeah, sometimes you don't have a chance. Hey, maybe you should just move, move to a continent instead of stop living on islands. Like, is that possibly your problem? Like, is

Eliza 53:36
he nervous? It's actually an island continent,

Scott Benner 53:39
whatever. It's surrounded by sharks, and you open your toilet, and sometimes there are spiders and snakes in it, so I don't know what you're doing. Maybe

Eliza 53:47
in, you know, other parts, not here in Adelaide. Have

Scott Benner 53:50
you heard me ever interview an Australian person where I was like, Come on, tell me you've opened your toilet and seen a spider before? And they go, yes, that's happened. And I'm like, see

Eliza 53:59
hasn't happened to me. If

Scott Benner 54:01
it did, you'd be on a plane and getting the hell out of there. You'd be like, my friends are right. I need to separate from you people.

Eliza 54:08
Goodbye. Cost me $7 for like, six months. Oh, never mind. Dexcom is free. Dexcom is completely free until 21 and then it's $30 a month.

Scott Benner 54:17
Oh, not quite a spider for that

Eliza 54:21
exactly, exactly I'm talking. It is great. Wow, hell, amazing. Is really good. Everything was just given to us on the platter. All right, I'm on

Scott Benner 54:33
my way. Yeah. Will they pay for the financial concern? Will they pay for GLP medications, or have they not come there yet? Thing I'm

Eliza 54:43
going to have to ask, yeah, it's a lot more, a lot a lot more support for children. Of course, everything's cheaper. If you're concession you're a concession part and through the public health system, and if you're a child, it's free. And it gets harder once you get a bit older. That, yeah, yeah, I'm

Scott Benner 55:01
tired of paying for stuff, so I'm coming to Australia. Makes sense,

Eliza 55:04
right? Mate. Do it? Yeah? Fantastic. Yeah, really fun. Is a lot of sunshine. I

Scott Benner 55:09
mean, I did like the idea that you're on the beach at Christmas. That sounded nice.

Eliza 55:12
Yeah? We usually have a swim, yeah, Christmas Day, but

Scott Benner 55:17
they're sharks, right? Well, you

Eliza 55:19
don't have to swim out where they swim.

Scott Benner 55:22
How do they know where to swim and where not to

Eliza 55:25
swim? No, they are large, and they don't come shallow. I always think you had it coming. If you go out there and you're doing something in the water, then that's in there. I'm a we're land animals.

Scott Benner 55:39
You've drawn a sturdy line between the common sense of a surfer and what they deserve,

Speaker 1 55:49
I think you did. Didn't you say that? Did

Unknown Speaker 55:52
you not say you've got it coming?

Eliza 55:56
All right? You knew the risks replace that. You knew the risk. If you go out into the like the big sea, then, you know, the big animals are there, like, if you go on a plane or go in a car, they're a risk. I

Scott Benner 56:11
hear you. I'm telling you right now. I saw a video the other day on one of the tech Graham things. It was a bunch of sharks swimming in what looked like a lake, not a ocean, there was an alligator in the picture. A bunch of people with Australian accents are like, I get away from the whatever they were saying, and then the one of the sharks bit, the goddamn. Is it a crocodile or not? Is a Crocodile? Crocodile? Crocodile bit the crocodile? I was like, What the fuck is happening? Why are these people near this? Why does this exist? To be

Eliza 56:45
honest, that's probably about a kilometer away place from here. So, like the whole of Europe, fit in Australia. You talk about Australia, it's like talking about many countries so big? Oh, it's huge, yeah, so we're in the south. We don't have crocodiles at all. There's no crocodile. You've been swimming up all the oceans that where we live. It's one giant beach. It's all swimmable. It's, it's a paradise.

Scott Benner 57:16
I mean, I hear what you're saying. Australia is huge. Australia is like, as big as America, right? Almost.

Eliza 57:22
I haven't looked at the compare maps on that one. I

Scott Benner 57:25
should have. I'll do it. Hold on a second. Yeah, that's freaking huge. That's like a real place. It's really

Eliza 57:31
big. Yeah, it is. It's huge, not a whole lot of people in comparison to other places, but it's, it's a lot of desert and a lot of just empty spaces.

Scott Benner 57:42
All right? I mean, I hear what you're saying, but there was, like, 50 sharks and a crocodile in one video, and there was a boat in the water, and the boat wasn't big, and the people were on and I'm like, what is happening? What are you doing? Go home. Like, stop drinking in public with your camera out, is what I was thinking, too. Like, my God, everyone's got

Eliza 58:02
a story to tell. Everyone's telling a story. You can choose which stories to watch. Eliza, I might be a boring person. Be among the stories. That's your choice. I

Scott Benner 58:12
might be a boring person, but vacuum your rug. Make a meal, go to bed. Get up, do some work. Smile. Have sex, take a shower. That's it. Stop with the crocodiles. DNA. Mean, like, my goodness, I

Eliza 58:23
agree. Drama. I don't need more. No, it's

Scott Benner 58:27
enough. What are you doing? Life's hard enough. You gotta go try find a place where sharks have the ability to bite the crocodile and then get involved.

Eliza 58:34
You can live a normal, boring, good life here. All right. Is cheap.

Scott Benner 58:40
Where? What town would I go to to live a normal, boring, good life in Australia,

Unknown Speaker 58:44
Adelaide,

Scott Benner 58:46
Perth. Perth, is that what you said sounds like you didn't want to say

Eliza 58:49
the age Adelaide, Perth, Perf, e r t h, I

Scott Benner 58:56
know what it was to be smaller. I'm just making fun of your accent. I'm sorry.

Eliza 58:59
I haven't been there, but, oh, are you now? Okay? You

Scott Benner 59:03
were like, you were like, Perf, I'm like, I think she means that Perth, but maybe I'm saying it wrong. Okay,

Eliza 59:09
pronounce your eyes quite so strongly. Like, that's just you guys.

Scott Benner 59:12
And here's something interesting. Adelaide. Kane is an Australian actress. Maybe she was named after the place.

Eliza 59:19
Did you know that sia is born and raised here, and is my mom is her godmother? Wait

Scott Benner 59:25
a minute. We've been talking for 59 minutes. I have a heart out in five more minutes, and C is your godmother, and this is just coming up. No, no,

Eliza 59:33
my mom is her godmother.

Scott Benner 59:35
Your mom is sia is godmother. It's 50 minutes in this I've got five more minutes to talk, and it's just again. Eliza, you how come you didn't lead with that? Stop right

Eliza 59:43
there. I'll just lay one more bomb on you, because you're gonna wish you had more time. My mom again, her first cousin is Nick Cave. Wait

Scott Benner 59:51
what? Yeah, I don't understand. How, how did all this happen?

Eliza 59:56
I know. What can I say?

Scott Benner 59:59
Wait. Right. Okay. So the Nick Cave thing, I have to admit, I don't care as much about because, you know,

Eliza 20:00:05
I know that you're a fan of sia is insane.

Scott Benner 20:00:09
That lady is very, very talented. Of course. How does this happen? So your mom's friends with somebody? Well,

Eliza 20:00:15
they're see his mother and my mother best friends since the 70s, Jesus

Scott Benner 20:00:20
Christ, and now you're telling me, okay, that's fine. Do you know? Have you met Sia? Well,

Eliza 20:00:27
yeah, and no, you see, the thing is, I wasn't sure I wanted to say it, but if I just knew you were such a fan,

Scott Benner 20:00:37
let me. Let me gusher a second here. Sia did a thing that never gets done, and she did it well, and it's amazing. She wrote new Christmas music, and it's not vomitous, you know what I mean by vomitus, right? And it's not, it's, it's catchy, and it's lovely, and young people like it as well as older people like it's she wrote modern Christmas music that everybody knows. That's nearly impossible to do, and it's very impressive. If you don't know the see a Christmas album, and it's Christmas time and you want Christmas music, you're making a huge mistake. If you don't just, I'm not lying, right?

Eliza 20:01:18
No, you're true. She's incredibly talented. I knew her as a teenager, so I was like, she took me out for ice cream, and we had a after that. Wait,

Scott Benner 20:01:29
wait, you, you faded away. You had one after that?

Eliza 20:01:33
Oh, it was a very relationship after she moved away. But I really, you know, she tried to give me her keys when I was visiting London to stay in her empty flat when I visited there, when I was 18. And then, you know, like, because she's a family friend, she was trying to help out. And then I met up with her when she visited Sydney, and I had a picnic with her and some buddies over there. I was only, like, early 20s. And then, you know, you know, one more time after that, like, it's, it's someone that I sent an email to occasionally was like, Oh, hey, I'm in this band. I think you'd love it. And like, I'm singing, I've always, like, you've always really inspired me. And, you know, like, yeah, just been inspired by her, yeah, um, she's amazing. I know you're

Scott Benner 20:02:23
pissing me off with a story. I don't know why it's making me upset.

Eliza 20:02:29
You wish you. You wish you. We could have talked about Thea, the whole oh my god, the problem I would have. The problem is there, Scott, is that I feel like this cheap Name Dropper, like I feel like I understand, because I understand.

Scott Benner 20:02:42
I'm sure she'll I'm not like, she'll never hear this. It'll be fine, really. Imagine, imagine Sia, yeah, I

Eliza 20:02:48
don't feel like that's cool, you know, like, I don't think that's being cool. Imagine

Scott Benner 20:02:52
sia knows somebody that gets type one diabetes, and years from now, she's listening to a podcast about type one trying to understand it. She goes talking about me on this podcast. And so

Unknown Speaker 20:03:01
it's true. It's true.

Scott Benner 20:03:04
I would, I would have spent 15 minutes talking about how, like, sia was a songwriter before she started singing her on mute, like, stuff or she did. And it wasn't like she didn't get out in front of it a lot and push it.

Eliza 20:03:15
Wasn't that, yeah, it was. It didn't go off. So she did. She did quite a few albums, and I loved all the early stuff. I've got them all. And then she just started writing for everyone else. Like, oh, here's a song for you. Here's a song for you. All the Pops. Oh, that got her then, like, all of them, yeah, her album

Scott Benner 20:03:34
with bird set free on it is really wonderful. Like, top to bottom. It's a it's a great, it's a great album. I don't know if people know this, but she writes the song, and then she lays down a demo track, and that's how they sell it. So if you go listen to Rihanna singing diamonds, Rihanna is doing an impression of siaz. Demo track,

Eliza 20:03:52
the only one I've heard we've actually like C is still on it, and that she's not credited either.

Scott Benner 20:03:58
No, she wrote that, but you can, yeah, you have to dig up the demo track. You

Eliza 20:04:02
can also hear him, like, you can hear it, yeah?

Scott Benner 20:04:05
Like, all those like, kind of weird runs and like, like affects on her way she sings is so unique, yeah? So Rihanna is literally just, she's mimicking the demo track. It's really interesting, yeah? Like, I don't say that in a band, it's just it's really interesting. So it would be, it would be like, if someone like, tried to pick up my Philly accent, or whatever my accent is now that I live between Philly and New York and like, you know, and and tried to mimic it like Rihanna heard that, and was like, I'm just gonna sing it with all the affectation that she has in it. And it's exactly the same. It's very crazy anyway, all right, well, the

Eliza 20:04:39
song wasn't going to be any good without it sounding like Thea, basically, I

Scott Benner 20:04:43
think so too. Yeah, no, she, it's not the words and the tune as much as it is how it's being sung, but just really cool. Okay, well, now I basically feel like I'm see his best friend because I spoke

Eliza 20:04:55
to you. Hey, six, six. Uh, what's it called? Six Degrees in separate. She's just gotten a lot short exactly

Scott Benner 20:05:01
right? My Kevin bas it's Six Degrees of Kevin Bacon. All right. I don't know what to call this episode.

Eliza 20:05:09
I hate him. Oh my God, I

Scott Benner 20:05:10
don't like Kevin Bacon. What has he done to you? I have two minutes. What has Kevin Bacon done to you? Just putting. He's Kevin Bacon's off putting. You know, he lost a vast amount of his money him and Kira Cedric in the Bernie Madoff pyramid scheme.

Eliza 20:05:25
I don't follow entertainment news. I just remember never liking any of that's not entertainment

Scott Benner 20:05:30
news. That was a massive like financial fraud.

Eliza 20:05:36
I don't follow the what? All

Scott Benner 20:05:37
right, well, I mean, I don't either. It's just, I just know a lot of stuff. I don't know why I know this stuff. Perfectly honestly, it's my brain's being wasted on, on knowing that Kevin Bacon and Kara Cedric were taken down by Bernie Madoff.

Eliza 20:05:50
I don't have space for that, Scott. There's no space in my brain for that. That's going in one out and out. I

Scott Benner 20:05:57
don't think you need that.

Eliza 20:05:59
I'm fine. I'm doing great.

Scott Benner 20:06:01
I apologize for having to jump off, but I have to go be a good spouse now, so I have a real opportunity not to get yelled at if I get off this recording right now and go do something.

Eliza 20:06:11
I'm sad we couldn't keep chatting longer. Me too. Also,

Scott Benner 20:06:13
if Australia is listening, please get better internet access. I like talking to people in Australia, but my God, is it tough? Like? What is it like you got one cable running under the ocean to China or something like that? Like, what in the hell? Jeez. Yes,

Eliza 20:06:26
that's the truth. No, not serious. No, no, no, I'm

Scott Benner 20:06:32
being serious. It's shocking. All it makes me think is New Zealand must be really in trouble. They're trying to use the internet. Yes, oh, my God, that's terrible. Like, your net sucks. I feel, I feel like it's 70 years ago when I'm talking to you, everything

Eliza 20:06:51
is behind here. Honestly, it's, yeah, yeah,

Scott Benner 20:06:56
all right, I gotta go. You were terrific. Thank you for sharing all this with me. You know better than you, and thanks for the podcast. That was way too nice. But thank you. I'll talk to you. Hold on one second. I'll say goodbye to you when we're not recording.

This episode of the juice box podcast was sponsored by us Med, US med.com/juice, box, or call 888-721-1514, get started today with us. Med, links in the show notes. Links at juicebox. Podcast com, a huge thank you to one of today's sponsors, gevok, glucagon. Find out more about G vo hypo. Pen at G VOQ, glucagon.com, forward slash juice box, you spell that, G, V, O, k, e, g, l, U, C, A, G, o, n.com. Forward slash juice box, the conversation you just enjoyed was brought to you by us Med, US med.com/juice, box, or call 888-721-1514, get started today and get your supplies from us. Med, all right, kids, we're done. We're at the end. Just do me one last favor if you can, if you could please, if you have the need or the desire for something that one of the sponsors is providing, please use my links or my offer codes, they help the show so much, and that means me, you're helping me to make this podcast every day. You're helping me to support the private Facebook group do all the things that I'm doing. I'm not asking you to buy something you don't want or something you don't need, but if you're going to get one of these items, use my links or my offer codes, they help me a ton. Thank you so much for listening and for supporting. I really do genuinely appreciate it. I'll be back very soon with another episode. Thank you so much for listening. I'll be back very soon with another episode of The juicebox podcast. If you're not already subscribed or following the podcast in your favorite audio app, like Spotify or Apple podcasts, please do that now. Seriously, just to hit follow or subscribe will really help the show. If you go a little further on Apple podcast and set it up so that it downloads all new episodes, I'll be your best friend, and if you leave a five star review, ooh, I'll probably send you a Christmas card. Would you like a Christmas card? The episode you just heard was professionally edited by wrong way. Recording, wrong way recording.com, you.

#1283 The Crack

Sarah is from the England. Her mother has type 1 and her daughter Poppy too and was diagnosed when she was 5.

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Hello friends, and welcome back to the juicebox podcast.

Let's see what I've got for you today. Oh, this is Sarah. She's from England. She has a son, Aiden, who's 11, and a daughter named Poppy, who's nine. Poppy has type one diabetes. We're gonna talk about OmniPod five raising children with type one and much more. There was a lot of consternation here about what today's episode would be called, but I chose the one you're seeing in your player right now. So blame me if you don't like it. Please don't forget that nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. Don't forget to save 40% off of your entire order at cozy earth.com All you have to do is use the offer code juicebox at checkout. That's juicebox at checkout to save 40% at cozy earth.com when you place your first order for ag one, with my link, you'll get five free travel packs and a free year supply of vitamin D drink. Ag one.com/juice, box. If you're looking for community around type one diabetes, check out the juicebox podcast, private, Facebook group juicebox podcast, type one diabetes. But everybody is welcome. Type one type two gestational loved ones. It doesn't matter to me, if you're impacted by diabetes and you're looking for support, comfort or community, check out juicebox podcast type one diabetes on Facebook. The episode you're about to listen to was sponsored by touched by type one. Go check them out right now on Facebook, Instagram, and of course, at touched by type one.org check out that Programs tab when you get to the website to see all the great things that they're doing for people living with type one diabetes. Touched by type one.org. This episode of The juicebox podcast is sponsored by hungry root, the easiest way to eat healthy. Hungryroot.com/juice, box. This episode of The juicebox podcast is sponsored by the ever since CGM. And sure all CGM systems use Transcutaneous sensors that are inserted into the skin and last seven to 14 days, but the ever since, sensor is inserted completely under the skin, lasting six months, ever since, cgm.com/juicebox, hi.

Sarah 2:33
My name is Sarah. I'm from the UK, and I have a 11 year old son called Aiden, and a nine year old daughter called Poppy, and she is my type

Scott Benner 2:45
one. Aiden is how old? 1111, and I, for the life of me, think you just told me your daughter's name is puppy, but that can't be, right?

Sarah 2:54
It's Poppy, like the flower got it.

Scott Benner 2:58
I was like, that would be a horrible name for a child. How old is she? She's nine, nine, right? Sarah, how old are you? I am nearly 45 I would have been alright with Navy said 44 I would have, I would have told on you, you're 45 you're married. I know that because of speaking prior to the recording. You have two kids. Poppy is nine. She has type one diabetes. How old was she when she was diagnosed? She was 554, years ago. Okay,

Sarah 3:28
it's actually her diversity today is exactly four years ago today. Did

Scott Benner 3:32
you do that on purpose when you signed up? Yeah,

Sarah 3:33
okay, I did because I knew I wouldn't forget the date. A lot of people do

Scott Benner 3:38
that. I used to think it was a coincidence. Then one day, I was like, you know, they're probably doing this on purpose. And then I stopped being stupid, because I was really like, people would say it over and over again. I'm like, what a coincidence. And I realized

Sarah 3:50
that I had the choice of dates, and I thought, yeah, I've got to do on that day, definitely, Sarah.

Scott Benner 3:55
We're gonna have to get this out of the way right away. And I'm gonna curse for a second, but it'll get bleeped out. Don't worry. You sound like Mary Poppins. Fidel, now, why?

Sarah 4:09
Okay, that's brilliant. Yeah,

Scott Benner 4:12
where are you about? Where are you from that your accents like this. Okay, so

Sarah 4:16
it's a bit I wouldn't even have noticed it's mismatch, but, so I was born and bred in London. Um, so, but not I'm kind of, what we say is half cockney. Some people think I'm cockney, which is the kind I don't know how to describe that.

Scott Benner 4:31
More of the cock the cockney is more Adele, yes, the Cockneys more adult, yeah, 100%

Sarah 4:39
but then some other people think I'm the Queen's English upper portion, upper crust, they would say, but I'm totally not either. I'm I'm a mismatch. Yeah, no, I

Scott Benner 4:50
heard the mix right away. It's really interesting. Also, I had a girlfriend once that said I was half cockney, but I think she was just trying to be mean. What are we gonna do? Did that not translate? Sarah? Did. Don't worry, it'll come to you later. Now, which is what I told that girl, let's get through Oh my, fantastic. I'm gonna tell you at the very end, because it's meaningless and it drops so dead in the water. I was like, Oh, wow. Somehow that didn't translate. That's fantastic. All right, don't worry about that. We'll move forward. There are Americans laughing right now as they're listening. Love it. Here's what we're gonna do. We're gonna find out a little bit about Poppy's diagnosis. So how did you see it? What were the steps that happened? You know? What was that first couple of days like? Well,

Sarah 5:35
typical, but there's a little backstory. So it was Christmas, 2019 and both children we thought were just being the worst, worst behaved children ever, ignorant, ignoring us, not doing what they'd been asked to do, not coming to the table. When we said teas, really all of this just ignoring us. And we were like, What is wrong with both of you? Both of you are being bone idle. Why are you ignoring us? You're being terrible. Christmas holiday. So turns out they both had ear infections at the same time, so couldn't hear us.

Scott Benner 6:11
Seriously, seriously,

Sarah 6:15
we had, literally, for a week or so during this school holidays, been shouting like unreservedly, at these two terribly behaved children. So they were, she was five and he was seven. And we just thought, What is going on here?

Scott Benner 6:34
Were they not in pain? No, no,

Sarah 6:37
anything. But we just thought, because it had gone on for so many days. We were like, there's got to be something wrong. And I think Chris, Chris, he was feeling under the weather or whatever. So we went to, what we have here is a walk in center, so it's an emergency. You can walk in and you get, like, a little ticket, and you wait your turn, and you see someone within a couple of hours. So he was going to check, and it turned out he had a viral infection. So he was feeling what, you know, man flu. We thought it was, but it turned out to be a viral infection. And

Scott Benner 7:07
we said, Well, why you thought it was the man flu? Meaning you thought he was just being lazy.

Sarah 7:14
Oh, that's a common term over here. Yeah. We call it whenever a guy is like, Oh, I feel like I've got a bit of a cold and, oh, I need to be wrapped up in a blanket. It's like, yeah, that's man Flo there's nothing wrong with you. Just go for it. You

Scott Benner 7:27
think boys do that to get a little time off, a little bit? Yeah, I haven't done that. Should I try that? Like, just walk downstairs and go, like, I can't today and sit on the sofa.

Sarah 7:37
Some women will give you some sympathy. Majority of women probably Kelly might not give you. That's the one I picked. No, I don't think she might be wise to it, but this many years, but you've already confessed you don't get ill. So yeah,

Scott Benner 7:50
it's true. I really don't get sick very often, so it would be hard for me to and when I do, I get sick very quickly, and it's over. Also, like, I make this announcement, go to bed, wake up in the morning, and it's gone. So yeah, all right, so he's, everybody's sick. You're yelling at the gear. You're having conversations where you're like, hey, we wrote We raised terrible children. Look at them. Yeah,

Sarah 8:09
yeah. It's funny, okay, definitely, totally questioning our parenting. Just thought it was all going down the pan. So yeah, they said, Can you just have a look at the children, because they have, you know, whatever. And they said, Yep, they both got ear infections, so it gave them antibiotics, sent us away. We felt terrible. Then they went back to school. Aiden recovered his ear infection. Went totally fine. Poppy seemed to carry on. So when she went back to school, they said, Oh, she's having real trouble hearing us at school. We've like trying to, you know, do a little bit of sign language with her, and all this to trying to communicate. She can't hear the teacher. All this, it all kind of happened at once. Then she started getting picked on by some older girls at school. So she started getting bullied, which we did sort out. So since she was anxious about that, so

Scott Benner 8:58
then she started

Sarah 9:00
drinking and obviously urinating loads, and then it just it all happened straight away. So we went back to the doctor. We actually saw a GP, so our general practitioner six times, and every time even I said, my mum is type one, but at that point I didn't know the difference. So I said, my mum has got diabetes, and my dad had diabetes before he died. He was type two, right? I said to them, could this be diabetes? Obviously, just totally didn't know which type just could this be? And they were like, Nope, definitely not. That's not on my radar. It'll be, we'll check her for a urine infection. So checked her, gave us some antibiotics because she was sore, because she was going to the toilet all the time. So they were like, oh yeah. Well, it look, you know, down there. Looks tender, whatever. So I went back every single week, without fail, for six weeks in a row, saying she's not getting better. It was terrible. She was up throughout the night, drinking throughout the night, going to. At the toilet school was saying she's drinking three and four bottles of water a day, right? All of that, so at one point, so the final appointment that we went back and they said, No, we don't know what it is. What we'll need to do is we'll need to send her for blood tests to check her kidneys and something else. And the waiting list for those blood tests will be three weeks.

Scott Benner 10:21
I'd like to introduce you to your partner in eating healthy. Hungry root. The easiest way to eat healthy, hungry root has the best fruits, vegetables, premium meats, kids, snacks, soups and stews, baked goods and so much more. Hungryroot.com/juicebox you can save hours of planning, shopping and cooking by letting hungry root deliver food you'll love right to your door, and hungry root is here to support your fuel and goals. Do you need more vegetables, less sodium? Hungry root can make that happen. If you're ready to dig in, use my link, hungryroot.com/juice box. Links in the show notes. Links at juicebox podcast.com How many times have you thought it's time to change my CGM? I just changed it. Then you look and realize, my God, it's been 14 days already. A week, week and a half, feels like I just did this. Well, you'll never feel like that with the Eversense CGM, because Eversense is the only long term CGM with six months of real time glucose readings, giving you more convenience, confidence and flexibility. So if you're one of those people who has that thought that I just did this, didn't I why? Well, I might have to do this again right now. If you don't like that feeling, give Eversense a try, because with ever since, you'll replace the sensor just once every six months via a simple in office. Visit Eversense. Cgm.com/juicebox, to learn more and get started today. Would you like to take a break? Take a shower you can with Eversense without wasting a sensor. Don't want anybody to know. For your big day, take it off, no one has to know. Have your sensors been failing before 10 or 14 days? That won't happen with ever since? Have you ever had a sensor get torn off while you're pulling off your shirt? That won't happen with ever since? So no sensor to get knocked off. It's as discreet as you want it to be. It's incredibly accurate, and you only have to change it once every six months, ever since cgm.com/juicebox, what is this? The Is this the norm in this situation, in this healthcare situation? It

Sarah 12:35
seems to be they, they didn't in any way. So they, all they were doing was they checked her. She gave five urine samples. They never once checked the checked it for sugar. They just checked it for infections, which I just find bizarre, and they didn't bring a finger. And they just thought when, when I said, would this be diabetes? They just looked at her, and obviously she was a slight, tiny little thing, and thought, No, this obviously, was you thinking type two? So at that point, after six weeks, I was like, I cannot. I can't let this go. I can't wait another three weeks for blood tests. So I ran my mum. So my mum lives like a mile away, and I said, Can you bring your blood testing kit around? I can't. Something is nagging me. I can't let this go. I can't wait three weeks. I need to test her blood sugar, yeah. And so my mum was poorly at that time. She was like in her 80s anyway. So my sister, who lived with her, brought it round. So she brought her clinic, but tested it and again it had that high, which obviously so high that it can't read a number, yeah. So then just obviously I knew, I phoned our emergency care, 111, they said, go straight to A and E, which is accident and emergency, which is your emergency room. Just go there straight away. So I rang my husband. So my husband's a police officer. He works, so we're in the Midlands. He works in Birmingham, which is about an hour, 45 minutes to an hour's drive away. So I rang him and said, This is the crack we've she's got diabetes. We are going to an E right now get home. So he drove straight home. We went because I don't drive. So we waited for him to come home. He stayed with Aiden. No, he didn't. My sister stayed with Aiden, and we took her to the hospital. And yeah, within 15

Scott Benner 14:19
minutes, Sarah, you don't drive because you're a fancy lady, or because you don't have two cars. Or why exactly? Oh, I

Sarah 14:25
wish. Oh, okay, so there's another element in the story. I don't drive because I'm visually impaired.

Scott Benner 14:31
Okay, I didn't know that. It just seems strange in this day and age that you don't drive. That's all,

Sarah 14:36
yeah, yeah, yeah. I would love to be able to drive. But no, it's not on the cards.

Scott Benner 14:40
Also, I might call this episode the crack. You said that a minute ago. Do you know that I did say that? Yeah, I don't know. I assumed it meant, like, here's the skinny. This is what's going on, or something like that. So it means that's the this is the deal. Yeah, here's the situation, here's the situation. That's the crack. Oh. I don't know why, but I love it. And you said it. I was like, Oh, I'm gonna call the episode unless you say some other British thing, which you very well could.

Sarah 15:09
Okay, I'm sure I've got plenty. So

Scott Benner 15:12
we've got your husband coming from across town. I like that. You try to get your 80 year old mom to come over with a meter. She was like, I'm old. No, yeah. And so don't, you can't wait to be like. Just not wait to be so old that when somebody says something to you, you go, no, no, I won't be doing that. She

Sarah 15:31
actually said that. She probably didn't. I don't remember. I was too polite.

Scott Benner 15:35
I just, I can't wait to be old like that. You don't even just like, I'm like, I don't care what you think. But um, but okay. So got the meter find the blood sugar high, which, in the meters we have here is like over 500 actually

Sarah 15:47
have it. So it was, so when she was at the hospital, it was 576 Yeah. Okay, so, so 32 UK, wow.

Scott Benner 15:55
Now we do We? Are we waiting for our husband to get back to pick us up, or do we just find a different way to go? I'm trying to figure out, does he take that long drive to meet you at the so

Sarah 16:06
they said, Go to accident emergency. Now I rang him and said, Do you want me to wait? And he was already in the car, so he was home with he obviously broke the speed No, he didn't break the speed limit.

Scott Benner 16:18
That wouldn't happen. There weren't lights and sirens and driving very quickly. No, no,

Sarah 16:23
no, he did. He couldn't have taken a siren home with him. No, but he was probably home within half an hour. So we thought, they didn't say, I mean, I don't know, in hindsight, maybe I should have just gone on my own, but I didn't. I waited for him and we went together.

Scott Benner 16:35
No, of course, did they call them Bobby's where you are? Where's the economy? Yeah. Well, he's a Hang on. Let me think he's a police

Sarah 16:46
officer. He bobbies. Yeah, Bobby on the beat, yeah. I suppose they would. They would refer to them as that. Yes,

Scott Benner 16:51
that's all. I want to know. If my television watching is accurate or not. That's all, yes. Okay, yes. Alright. We get to the what did you call the emergency room. What do they call

Sarah 17:02
it? A na accident and emergency? Okay,

Scott Benner 17:04
you get there, Are you pissed the whole time that you've been trying to tell a doctor this for weeks? Or do you does that go

Unknown Speaker 17:12
out of your head? So it

Sarah 17:14
was just so it was so traumatic. So they they couldn't even, what were they doing? They were doing their toes. I don't know what they were doing. They couldn't get blood out of wherever they were trying to get it. So they end up doing her toes. And it was just all

Scott Benner 17:28
a horrible situation. But,

Sarah 17:32
yeah, no, they just only diagnosed her. They got her on a ward as soon as possible. I so at this point, obviously I know they're like, it's type one, it's insulin forever. I'm like, All right, okay, that's my mum is then. So I then clicked, my mum is type one. My dad was type two. I think he got type two in his 60s. But then and he managed to last that. He said, he said, his words last 20 years on diet and exercise before he then had to use insulin. So when he passed, he was on insulin as well, but I didn't know which. I knew they were different types. They both had different types, but I didn't know which, all right, obviously. And so this is a

Scott Benner 18:10
bit fascinating, Sarah. So we're going to take a left turn for a second. Your mom was how old when she was diagnosed

in her 30s? Ah, okay. But

How old were you then zero, right? So you were so so your entire life. Your mom's had type one diabetes.

Sarah 18:25
Yeah, yeah. She was diagnosed in her 30s after her third child. I was her fourth child, 42 Hold on

Scott Benner 18:38
a second. Your mom was a player.

Sarah 18:40
She had. She spent her whole life having kids. I think so. Do you want the story? God damn right. I do. Go ahead. Okay, so she got married at 17, okay, to my dad, who was, at that point, 26

Scott Benner 18:55
Oh, okay.

Sarah 18:56
I know, to me controversial, but in those those days, so hang on. Let me think, oh, do I know the year? So hang on. She would now be, she passed when she was 84 which was three years ago, 87

Scott Benner 19:11
so she would be 87

Sarah 19:14
she got married 75

Scott Benner 19:15
years ago. So, like it was the it was 1950 maybe, yeah, yeah, about well, so he, he had a job, so he was a good choice.

Unknown Speaker 19:25
He'd just come back from

Sarah 19:26
the army, okay? And he was a family friend of her mum and dad's, so they, like, loved him and all that. So the fact that he was 23 and she was at 17 wasn't

Scott Benner 19:35
wait 23 or 26 No, hang on, 23

Sarah 19:39
he was six years older than her. He was 23 she was 717. Did I get it

Scott Benner 19:43
wrong? You said 26 the first time, but that's 23 you know, it's funny. It's not any better. If a 23 year old came after my 17 year old daughter, he'd leave here with a stick on the side of his head. So, yeah, but okay, absolutely. 1950 they they get married, they make a baby, right? Away, yep, since

Sarah 20:01
she had my brother when she was 18. Okay, so they got married in the January, he was born 13 months later in the February. I

Scott Benner 20:10
hear what you're saying

Sarah 20:13
right away. Cracks on. Yeah.

Scott Benner 20:14
Wait, what was that? What was that saying? They cracks on. I don't know what the you're talking about. Doesn't matter. Okay, so did you hear that thing I did with that kid, the British kid, like a year ago,

Sarah 20:29
I have listened to every single episode. Oh, within 18 months,

Scott Benner 20:34
his accent was so thick that I was proud of myself when I understood what he was saying. Do you remember him?

Sarah 20:40
Oh, because there's only been so I've listened to all of them, obviously, but there's only been about 10 British that

Scott Benner 20:45
I think of he was on a reality TV show. Oh, yeah,

Sarah 20:49
I know him. Yes, I know him. And I went and googled him afterwards and found out who he was.

Scott Benner 20:53
Yeah, handsome boy. Am I wrong? A boy? He's a handsome boy. I

Sarah 20:57
said, well, too young for me. Well,

Scott Benner 21:00
I didn't say, well, not well, not too young for your dad, but go ahead. Okay. Now, so, so your mom and dad are knocking out kids. Tell me how many they had, and you were the Go ahead,

Sarah 21:11
four. So she waited 10 years, then after that. So I think they learned their lesson, having had one so quickly they thought, yeah, I think we should chill out now that was

Scott Benner 21:23
expensive and painful. Yeah, definitely okay. So she took a 10 year break and had another one at 2728 Yes, yeah, 27 and 30.

Sarah 21:36
So she had two close together. So I had two sisters. Have two sisters. So she had one at 27 one at 30 and then within a couple of years of her, of my second sister, she got type one. Okay, so that would have been in so my sister was born in 69 so early 70s, she was diagnosed, right?

Scott Benner 21:58
So there you go. So your mom, because that's the first thing I thought was like, was she, you know, she wasn't cranking out kids with type one, so she gets type one after her third that, am I guessing that slowed her down, but then she wanted to try one more time for a baby. Or did she get pregnant with you by mistake? I was sorry. I was conceived in

Sarah 22:20
by accident when my sister was, she says, dying in hospital with meningitis.

Unknown Speaker 22:26
Oh,

Scott Benner 22:27
they're just trying to get get rid of a little stress. Maybe

Sarah 22:31
it's not true. So, yeah, my sister got meningitis when she was 12, and was in hospital, critical. And they were, you know, she was in hospital for ages, and her my mom came in and told her the funny story my sister retells it so well, but she came in and said, Oh, guess what? You know, we thought I was going through the menopause, but no, looks like I'm pregnant. And her response was, you're already lining up my replacement. What is going on? I haven't even died yet. She she didn't. She recovered. Obviously, she recovered. She's fine.

Scott Benner 23:04
Sounds to me like your dad was like, I am feeling very stressed about this kid in the hospital. Yeah, you know what would help mother so and you can't get pregnant. You're so old, but then boom, here you come. Okay, I guess, nice, jeez. Okay, your visual impairment your whole life. Or,

Sarah 23:22
yeah, Googling it, I have thought that maybe it there. It has, has something to do with type one back then, as a mum having type one and visual impairments on the children. But it's never been as cut and dried as that. They've never really said that. It's just speculation. I

Scott Benner 23:40
mean, so this is really interesting, because your mom lives a long life with type one. She lives 50 some years with it, yeah, but you're unaware of her management in my mind, like, because it's not, it's not front of mind for you. So, like, did you not see her taking care of herself? That is the whole reason I asked about this, yeah. So she

Sarah 24:02
was, I think, in my mind that now, having known, obviously living with poppy for four years now, and knowing all the stuff, she must have been on a constant roller coaster. She must have been because the management that I saw, or that I remember she she was told many years and years ago, she was told she was brittle, which, again, I think, was them giving up on her to a certain extent. Yeah, would, when my dad was around, he would very much take, not ownership, but he helped her out immensely. I know that. I know he would. He would always be like, you know, oh, that's a fistful of a potato and this kind of thing, he would know, oh, that's one unit, that's two units, that's three years he would look at a plate, and he would do very much like you it wouldn't be how many grams of carbs, it would be, how many units of insulin is it, right? And he majority of the time when he was there, he would do it. He would do it for her and tell her how much to dose. I did have a handle on it, but many times so in when I was growing up, I would come home to and find her unconscious. As a child, it never, kind of, I don't think if it affected me and scarred me or that kind of thing. It just was like part of life, like, oh, mom's low again. I need, oh, she's had a Hypo.

Speaker 1 25:17
So we all grew up with it

Sarah 25:21
as part of life, not as a big normally, she would handle it, but sometimes I would have to call the ambulance when I got home from school. So that sounds terrible, but it didn't seem like a big, massive thing, but it was obviously, yeah,

Scott Benner 25:36
it just didn't ring out that way. So I mean, 56, eight, it's in the 80s. I'm trying to so you're when are you born? Give me the year you're born.

Sarah 25:45
7979

Scott Benner 25:48
so she's like

regular NPH, or maybe beef and pork insulin for a little while mixed in there. Yeah, yeah. She did have beef and pork, yeah, and then. So she's just shooting once a day, twice a day, as it goes on for that decade. And yeah, and probably just doing some food exchange, kind of an idea, or that kind of a thing, okay, yeah, and your dad knows more about it than she does. Was she an unstable lady? Did her personality jump around?

Sarah 26:18
I would say she did have bouts of depression, but never diagnosed and never treated. I think she would get herself real, really anxious about certain things, like she'd she'd have shingles a few times, and be super worried and super anxious about things, but we just kind of went through it and just carried on. Okay, I don't know if it was, it was like, like you said, was she altered because her sugar levels were high for such a long period of time? Yeah,

Scott Benner 26:47
was she? Was she angry? Short tempered, foggy, then goofy? You know what? I mean, like, did that bounce around like that? Or maybe not. Maybe those slower insulins didn't give you as much of us. Maybe the swing was more in the number not, I don't know. I'm guessing you know older people with diabetes. But okay, so, so you don't really see it a lot growing up. It's not even a thing you think about. Like, if I would have said to you prior to Poppy, if I would have said to you, hey, tell me five things about your mom. You don't you wouldn't say she had diabetes, right?

Sarah 27:18
Probably not. Yeah, well, probably not. I mean, she did move on with it in and in years to come. She did move on with obviously, faster acting. And she did get a libre so she was checking less, but the way, well, as soon as I was like in the know, not in the know, but as soon as I knew more, I felt like she was not getting decent care at all. I do think that they had, she was a lady, so she lived at 84 Yeah, I think and poppy got diagnosed a year before. So I think they had thought very over the past, however, so since my dad, probably the last five to eight years, they had thought, Do you know what? She's a lady in her 80s. She's not doing a good job, but just let her be. Let

Scott Benner 28:04
her Sarah, 84 if I make it to 84 I'm calling it a I'm calling it a good day. I'm believing. You know what I mean. Don't you think that?

Sarah 28:12
Yeah, yeah, I know, but I know her health was seriously damaged and seriously affected. Yeah, had it not been, well, God, she might have made it to 94

Scott Benner 28:23
Yeah. I mean, she had the if her body had the fortitude to get to 84 in bad shape, you're right, she might have gone farther. Yeah. I mean, it's very interesting, because obviously it's not you know what you would call modern care. She didn't experience any of that. Do you even know about her side effects? Do you know what she was living with, as far as troubles, yeah, what did she have going on?

Sarah 28:42
It didn't really all the side effects generally tend. She seemed to be absolutely fine. She was fit as a fiddle, we say. And she was always 10 years younger than what she actually was. She looked absolutely fantastic, amazing, really fit and healthy until my dad died. So at that point she would have been, hang on. So he was 82 she was six years younger, so she would be 76 Okay, so she had so 70 up until 76 maybe a year after she was she just looked so young. She looked in her 60s. Everyone commented, oh, your mom looks so young. She's got great skin, this, that and the other. She would walk miles and miles and miles. She wouldn't get the bus to somewhere. She would walk, even if it was a couple of miles, do everything in herself, all of that, all that she just was a young 76 Yeah. But then it started to all hit her. So she had neuropathy, definitely in her feet, that was for a while, so she would have to be really careful. She could step on a nail or anything and not even notice until she saw blood gushing out. No feeling in her feet. Her hands were really, really badly arthritic, but she was also she lost feeling in her fingers, and I think probably for best part of 4550 years of fingerprint. With kin,

Scott Benner 30:00
maybe neuropathy. Do just yeah,

Sarah 30:02
all the feelings just gone, yeah. But then she started having so her kidneys. She definitely had kidney problems again. I don't know the exact diagnosis they she wasn't on dialysis. She wasn't on dialysis, yeah, okay, no. They were saying she has got kidney failure, she has got kidney disease. She's got heart problems, heart disease, etc, etc, so she did have all of that. But then that same Christmas, when we accuse the kids of not listening, obviously they had ear infections, she was also diagnosed with Alzheimer's and vascular dementia at the same time, really. So that was, that was the slow decline. I think that was, that was the beginning of the end. Yeah,

Scott Benner 30:45
they also, they call Alzheimer's, uh, diabetes type something,

Sarah 30:49
yeah, I've heard that, yeah, yeah. Okay, so

Scott Benner 30:54
that's her. That's your understanding of her. Poppy's diagnosed. Do you at some point think, oh my gosh, my mom's life is my daughter's life now. Or do you see that it's different when they start teaching you about the management and think maybe this will be different

Sarah 31:11
for her? No, yeah, I didn't see it the same because I thought as soon as they started educating me, I just thought, or I started to educate myself. I thought, this is not the same. This doesn't have to be the same. She doesn't have to have all these problems, because we don't manage it even from day one, my mom in that first year that there's only one year where they were both a lot, well, my mum was alive and obviously, and then it covid Hit. So we couldn't meet up with her very often, but she would wake up. My sister would tell me she if mom wakes up in the morning and she's high, she just doesn't have breakfast, and she'll wait till for hours until she comes down. And I'm like, what? Why doesn't she just have a correction dose? What didn't make any sense to me. And then again, I'd meet her up. We met at the park so she could have a little walk round, and the kids could play on the swings, whatever. And I said, what's going on? Or how are you? Oh, I need to walk around for a few hours because I'm quite high. I'll just walk it off. I was like, Do you not want to take a correction dose, though? And she's like, No, I'll just walk you know, I won't have tea until I come down. It doesn't make any sense to me. Yeah. From Yeah, and I was only like, you know, a couple of months into it, I was thinking,

Scott Benner 32:25
that's not what you should be doing. Were you able to feel any like responsibility to your mom or guilt about her life? Or were you so overwhelmed with poppy that you kind of couldn't think about other

Sarah 32:38
people? I do feel that if I had somehow been more involved or known more that maybe I could have helped her, but I wasn't involved. I didn't know and my sister was her carer. And it turns out, my sister knew absolutely nothing about diabetes at all, and didn't take it upon herself to learn.

Scott Benner 32:56
I don't know how to figure that out, like it's I don't when a doctor or tells you this is how it works. I think most people just believe that. And why would they not? You know what I mean? Like, why would a doctor give you some of the information about your daily disease? You know what I mean? Like, it doesn't make sense. Like, why would you even wonder, did they tell me everything? Yeah, but I mean, I take your point. She's living, she's doing okay. And probably people told her, Oh, you have neuropathy in your feet because you've had diabetes for so long. We expect that. Yeah, you know,

Sarah 33:28
all of the, all of the things they're all said, it's because you've had diabetes for so long. This is why you've got X, Y and Z, yeah,

Scott Benner 33:34
oh yeah, absolutely. And nobody said X, Y and Z for a while on here. So that was good. Good job. Okay, how do you teach yourself about diabetes for Poppy, okay,

Sarah 33:46
so the first let's think the first six months, we were very much drip fed from the hospital, from the diabetes team that we have there. So you have a group of nurses, you have a consultant that you see. Maybe you see the consultant once every three months. But in the early diagnosis, you get weekly, they're doing obviously, it was all covid. So Poppy got diagnosed on the seventh of March, 2020, she was in hospital for three three days. We got sent home. We went into the hospital, had a meeting, they did all the education, all that kind of stuff. And then the 20th of March, everything shut down. So then, from then, they didn't see us again for six months, nine months, it was all remote. So it was phone calls and emails.

Scott Benner 34:31
Was that helpful at all? Like, did you feel yourself understanding getting better moving forward, or was it just the thing they were doing?

Sarah 34:38
No. So, because I had six months with poppy 24/7, I feel like I did get a handle on it, because I watched her every single day for six months like you with Arden when she was diagnosed, you just stare at her. Thought, what is happening inside? Said they were quite helpful. I do have to say, Yeah, they did give they were really checking in. So, like, the first month, they said something like, she can have no snacks in between meals, because we want to work out the ratios, which was really hard, so she could have carb free snacks. So okay, which is why she now hates cucumber, because for a month, she had to eat nothing but cucumber and cheese and whatever they said was low carbs, carb free snacks in between meals. But a five year old, she now doesn't like any of those things, but yeah, that's how they worked out carb ratios. But then I think within, I don't know how long they would do checks so, you know again, if her so they were, she was on lances and Nova rapid injections, if she was, like, going low in the evenings, or that, they would change all the how much collage in the background. They would do it, and they would check in, try this, and we'll give you a call in a week's time. They were doing what they said, they would check in with me. But at some point, I don't know when, but at some point I was like, You know what this is? I can't be listening to them anymore. I need to do this myself. I don't know when it was, but at some point I just thought they're only tweaking it by this little amount, and then it's see what happens for a few days. Well, why do I need them to okay it? I can do that. I can tweak it a little bit and see what happens in a few days. And then if it doesn't work,

Scott Benner 36:21
I'll put it back. Yeah? I mean, feels like common sense, right? Yeah, so

Sarah 36:26
very I'm gonna say maybe a year. I don't know if it was a year, but then she's had, like you said, you have to be your own advocate. We've had to fight for everything that she's ever got, as much as, I think people say everything's free here, as much as it's funded by the National Health Service, it's not just given to everyone on a plate. 100% not. And we've had to dig our heels in many times to get what we needed to get for Poppy, so

Scott Benner 36:57
Sarah, it's free if you can get it. Yeah, yeah, gotcha. Like, if you can get yourself to it, get your hands on it, get somebody to agree to hand it to you, then it doesn't cost anything. But it's not just like you don't wish out into the air and it just arrives. No,

Sarah 37:10
absolutely not. And it does seem to be like we refer to things as a post code lottery here. So depending on what area of the country you are, can very much dictate what you are offered, yeah, and whether you will get it or not. Just

Unknown Speaker 37:25
yeah,

Scott Benner 37:27
I was interviewing this girl the other day from America, she's a nursing student, and she said, Oh, she was talking about something that they teach in school. And she said, Well, it depends on, you know, what part of the country you're in. I'm like, why is nursing school depending on what part of the country you're in. Like, aren't there basic ideas that they all need to know, whether you live in Minnesota or Florida? You don't even mean, I was like, that doesn't make any sense to me. But then you're you say this, like, post cold, what you call it post code lottery. And if you talk to people in Canada, they'll tell you that their diabetes care vacillates wildly depending on the province you live in. Yeah, yeah. Where some places they'll put you on regular and mph in 2024 that's insane. Yeah? So, or you go to another province and they're like, no, here's a CGM and a pump and let's get going. It's really interesting. I've been, um, I'm gonna have to stop doing these cold wind episodes a little bit. I'm gonna need a break for myself, because I'm getting a little cynical listening to them. You know what I mean? I'm like, oh, say that, yeah. So everybody's just not trying. Got it great, except the ones who are up until they burn out and they stop too, like, yeah, all right, great, you know, I'm sorry. So you're making it. You're making it through this process. You're teaching yourself on your own, using the internet, using, I mean, you can't, you can't use your mom. You can't use your sister. Did you try? Did you call your sister and then you were like, oh, hell, she doesn't know anything. It's

Sarah 38:55
a very sore subject, to be fair. But she was trying to do the bare minimum that she could for to with my mom's care. She didn't want to get involved. She didn't want so my mom was with her arthritis were getting worse. She was fighting it harder and harder to do the injections herself. Yeah, my sister didn't

want to do it. And I said, What do you mean? She's like, well, I don't feel comfortable doing it. I

thought, I don't feel comfortable giving my five year old an injection, but you just do it. Hey,

Scott Benner 39:19
I've been married for 27 years. I haven't been comfortable. Once I you don't hear me complaining. I just get up every morning. I go, okay, and I go, yeah.

Sarah 39:29
So she was reluctant to take on any responsibility, she said, so they so she requested that a nurse would come in to give my mom a couple of injections a day. So they tried to put her on like NOVA mix. Do you know that? Do you have that in states, which is half long acting and half fast acting mixed into one? So she could have two shots a day? Okay, so they tried her on that so that then a nurse could come in twice a day to do it, because my sister was refusing to do it. But then that had her numbers just went all over the shot. But it was a total disaster. So there to go back to slow, slow acting and fast acting. And she was starting to come around to the idea of, I'm going to have to eventually do it, because mom can't do it herself. I was like, if it wasn't covid, I'd be around it. I'd be coming around and doing it myself. It's not but no, anyway, she

Scott Benner 40:16
Yeah, I hear you. I hear the frustration. I understand. I don't want to ask more questions, because it's your sister, but I but I get the I think I get what's happening. I'm trying to get you to something that you brought up before we started speaking, that you want to talk about. This all falls on you. Your Poppy scare. Is that right? Yeah, you're the one that takes care of it, and generally, generally speaking, your husband understands it. Or no, yeah,

Sarah 40:43
yeah. So obviously, the first six months, it was me. He was, obviously, he's a police officer, so he was front line. So he was still working 6070, hours a week during the whole of whole of it. So us, the three of us, were at home, so me and the two kids. So for that six months, I was very much doing all of it. He was involved. So when he was home, he would do the injections, but I would obviously be cooking the tea, I would be carb counting, I would be doing all of that kind of ratio stuff. And then when we started doing it ourselves, so not asking the hospitals for approval to make changes, it did fall to me now, I think because he always says, Oh, you're a maths guru. You're a maths person, da, da, da, and all that that he he won't understand it. He will understand it. He just hasn't, because I do it. Has

Scott Benner 41:31
he ever told you you're better at doing the dishes than I am? I would do them, but you're so good at it. So I'm gonna try that on. My wife. Is what I was, I was just wondering if that works or not. It's like, you know, vacuuming, you just, you have, there's a certain way you do it that I think really makes it better. You get in there. So, okay, so he, do you think that's him feeling like, Oh, God, I don't want to make a mistake. So I've asked

Sarah 42:01
him about this. So with all this, so when I started learning reading within a couple of months of diagnosis, she got the libre because I'd read that she needed something. Now they wouldn't give out dexcoms Because they only gave out dexcoms At that point to kids who were hyper unaware. Now she had did have some hyper awareness from the start, or people who had had really severe hyperglycemic episodes or something like that. So she didn't tick any of the boxes for Dexcom. So this is why they gave her the libre, which, again, is the NHS way of like the poor man's,

Scott Benner 42:37
whatever it's called. They were saying. Yeah, that's what

Sarah 42:41
they were saying back. Then it's a cheap version. We'll give the cheap version. So we had that. We did have that for let me think, let me think a two years until, in a weird way, thankfully, but also not thankfully, Poppy lost her hyper awareness. Now, I think in my mind, it was because she was roller coasting. She was having highs and lows because we couldn't rein in the the libre did not work for her. It was really bad. We went through this time where it was it had such a big lapse. If she was dropping, it would have a massive delay, so we'd have to put her low alarm at something crazy, like 100 so 5.7 it's 5.7 100

Scott Benner 43:21
you want me to look

Sarah 43:23
five, not fives 90, so definitely over 90. But yeah, her, her high alarm was like 5.7 because by the time it went off at 5.7 she was already below 75.7. Is 103

There we go. So yeah, so

if her low alarm went off at 5.7103 we would finger prick, and she would already be three point something. So in the in the 60s, so we it just wasn't working with her. She wouldn't feel it. We told the hospital this, thankfully, and they approved the Dexcom for her. And then, since we got the Dexcom, her hyper awareness has gradually come back, and I think it's because we're she's more stable now. She's got loads of stability since we found the podcast. What? As soon as she got the Dexcom, her a one, Steve said I had coming down, so it was like 6.86 point 6.6 6.5 6.3 as soon as we found the podcast, within three months, it's been in the fives, and it's been in the five for 18 months. Oh, that's wonderful. 5.3 5.4 5.5 it doesn't go above there.

Scott Benner 44:25
That's amazing. Good for you. It

Sarah 44:27
is amazing. Congratulations.

Scott Benner 44:28
Good for you. Thank

Sarah 44:30
you. Thank you so much. You're very

Scott Benner 44:31
welcome. It's but again, not I haven't said it to you. I shouldn't have said again, but I should have said that I try really hard in these moments to do two things. First thing is, is going to sound strange, but I like to separate myself from the podcast, because it's unhealthy for me to feel like I helped all these people. Do you know what I

Sarah 44:51
mean? But, but you are the creator of the information. That's fine.

Scott Benner 44:55
The podcast helped you. It makes me more comfortable if we talk about like that, okay. But the other thing is. I just said the stuff out loud, you did all of the hard work, all the staring, all of the experiencing, thinking about it, going back again. Like, I just sort of, like, I don't know, I just shoved you through a door, and I was like, if you keep walking in this direction, this is going to work out. And you you just, you did it, you know. So, yeah, I appreciate it very much. I'm not trying to be it's such a weird position for me to be in, I know and I and I appreciate it and thank you. I know I did this, but it's weird to say, it's weird to say out loud. It just feels I feel like a dick if I say I don't know, I just do all these years later, it feels weird to have somebody thank you for their health. You know what? I mean, you might not know it's a just an odd situation I'm in. I guess I'm never gonna know why I feel that way, like there's part of me that thinks because I didn't help my friend Mike, I don't want to feel like I helped other people. That's one of the things that bothers me a lot. And I think the other thing is that Arden is a work in progress, as she will be her whole life. I'm not superstitious, but I don't want to take credit for the thing until I know if it worked the whole time, because it would be strange if I was like, Oh yeah, I know what I'm doing. I'm so good at this, etc, however. And then, you know, Arden wakes up 10 years from now and has problems. You don't even mean like, I don't know like, it's just, I don't know how to explain this part. You can do the best that you possibly can, and it's about it's weird, because you could ask me almost any other question, and I'd go on for 15 minutes and talk my head off and be completely clear minded about it. But why can't you take a compliment about the podcast? I don't know. I can do it in writing, like I can do it online and like on Facebook. If somebody's like, Oh, my God, the podcast helped me so much. Blah, blah, I can say, Oh, I'm so happy for you. That's great. I appreciate my pleasure. Like, I'm easy, but when, when I can hear the person's voice, I curl up a little bit. I don't know why exactly. So anyway, I appreciate it. I'm so happy for you and for her, and I don't know why it makes me uncomfortable. Maybe if I make the podcast for 10 more years, I'll figure it. Maybe I should just ask Erica, oh, why don't we just do that? Yep, she'll go, I'm not your therapist, but it's okay. We can still talk about it, because I feel like an asshole right now. Like, like, I really do. Like, I just, I'm like, why couldn't I just say thank you and move on?

You know what I mean? So I don't know, Terry, you didn't want to

Sarah 47:34
fall a lot of a lot of people have that though. It's like, when someone pays you a compliment, loads lots of people that bat it away. It's like, you need to just accept it. Someone say, Oh, you look amazing today. And go, oh, this scruffy thing, this old thing I've just thrown off. It's like, no, just go, thank you.

Scott Benner 47:52
I accept your example. Except I'm not like that in any other aspect of my life. The the other day, I bumped into my doctor, who's like, literally bumped into her, and she's the one who helped me get on the GLP medication, which I've almost been on for exactly a year. I'm 45 pounds lighter today than I was a year ago. Wow. And she saw me, and she goes, Oh, my God, you look so much younger. And I was like, Yes, I do. And then I said it to anybody all day long, who would stand in front of me. There was six weeks where I referred to myself as skinny Scott, and I would say things like, skinny Scott likes fashion, so, so I have no trouble accepting a compliment. In my mind, I didn't do this like I took the GLP and I lost weight. So, yeah, I don't know there's something also

Sarah 48:40
made a conscious effort with thinking about what food was entering your body. I have

Scott Benner 48:45
been doing. I have absolutely been doing that, and I'll take credit for that. I can't take credit for the podcast. It makes me feel weird, and by the way, like I can step out of it and tell you, like, academically, I know what I did. I know I made a thing that's bigger than anything else has ever been, that's reached more people, that's helping more people, that's more accessible and digestible. I know it's academically. I understand the whole thing. I can talk about the podcast like it's not me. I can't talk about me like I'm the podcast. I'm gonna find out why. I'll go to therapy. All right, okay, let's get past this, because nobody gives a what happened to me when I was nine and why I can't take a goddamn compliment about a podcast. So people are like,

Sarah 49:29
Okay, let me tell let me tell you something, which I think adds to our challenges that we've had over the years.

Scott Benner 49:39
You did touch on it earlier. I'm ready. Oh, sorry, no, I thought, I thought you paused like you were waiting for me to say something. Oh, my God, tell

Sarah 49:48
me so I said that I have a visual impairment, right? So this, this actually threw a spanner in the works with Poppy's

Speaker 1 49:55
stuff. So after. Six months, they

Sarah 50:00
suggested to us that she would go on the waiting list again. It's not just handed out the waiting list to get a pump. So we were like, yeah, yeah. 100% put that. Put her down for that, no problem. And they said it would take a year or

Scott Benner 50:14
whatever. I don't know were they making it by him exactly?

Sarah 50:18
I don't know that. I don't know how they justify whatever this waiting list was, but it was going to be a long waiting game. Okay, so when they so we said yes to that. Meanwhile, Poppy was this, I don't know, really sensitive to injections. She was fine having them. We would do them. We weren't chasing her around the house too much. It was fine. She would give in to injections, however, many times, but she would bruise every single time that we did it. And we were like, Is it her? Is it us? Like, you know, they, they say, like, hold, like, keep the needle. Like, totally still hold it in for 10 seconds. We were doing that, and it's still a massive bruise. I'm like, is she moving? She's five. She does fidget a little bit. What is going on anyway, doesn't it didn't matter what we did. She was always bruised with every single injection, so she just looked like a little bruised

Scott Benner 51:08
pin cushion, like you're a flicker.

Sarah 51:11
So we heard about this thing called at the eye port, which I think you got someone else. A few people have mentioned, yeah, is it Medtronic? It's Medtronic.

Scott Benner 51:18
Medtronic makes the I port. I'll say this out loud for Medtronic, because they're sponsors. Now, again, I don't think it makes any money. I don't think there's any business behind but it's such a great thing. I wish they would talk about it more. You know, it

Sarah 51:31
really was good. So we looked at it. We requested it from a hospital. They said, No. They said, We will not pay for that because you're on the waiting list for a pump. So again, hang on, but she's still bruising from injections right now,

Scott Benner 51:44
yeah, but a year from now, she won't be when we get it there, yeah,

Sarah 51:48
so they said no, because you're on the waiting list for a pump, you we will not fund an eye port. Okay, fine. So we self funded it. We bought it ourselves, which is fine, and she was on that for however long, until she finally got a pump. It was a god send, because obviously she couldn't feel the injection. It was very similar to a candy like you change it every three days. She's having her injections just literally slotted in into the hole, which I managed to do with magnifiers and glasses and all this stuff. So I could do that anyway. So when we get to the pump situation, they have a choice. So again, our hospital had the choice of

Scott Benner 52:26
Medtronic or

Sarah 52:30
OmniPod. Yeah. So those were the two options. Now they we went to the little meeting. They had them all on the on the table. So she looks at these Poppy looks at these small little cannulas, and then she looks at the to her chunky omnipot, and she goes, I want those. I want those. And I said, right, yeah, hang on. But what you've got to understand is that tiny cannula is attached to a tube, which is then attached to this massive, massive pump. And she was like, Yeah, that's what I want. Like, okay, I had thought she'd go with tubeless. Okay, fine. We'll see. So you get the trial. So they do a saline trial with it. So we took it home. She was like, she was liking it. She was like, Yeah, we like we like this. I want to do this good. Okay, fine. Got it all authorized, got it all funded, etc, etc, bring it home.

Scott Benner 53:20
I can't see to fill it

Sarah 53:23
doesn't doesn't matter what I do. I cannot get the insulin out of the vial. Yes, I can't get, I don't remember how I how it was. So you had to fill the little reservoir. Then you had to prime the tubing, get all the bubbles through the tubing, get the bubbles out of that, whatever it was, I was not able to do it. Couldn't do it. So we then had to get into discussions with them. Could my husband spill it on a day when we weren't using it like before he got to work or did and they were just like, No. They pulled it. They're like, you're not having it. There's no way around it. You're not having it. She'll have to wait another year for a pump.

Scott Benner 53:59
They couldn't just give you a different pump.

Sarah 54:03
So this is, this is what they said. They said, if it's not that one a hand, they didn't even, they didn't even talk to us about the OmniPod. They just said, If you can't see to fill that one, you're not going to be able to see to fill anything else. It's done. Her pump journey is put on hold until she's old enough to do it herself. And I was mortified. I was like, no, no, no, I'm affecting her health. This is, this is all my fault. This is going to be her waiting until, what? Until she's 1011, 12. I couldn't envisage when she was going to be able to do this all herself. But thankfully, we then got a follow up phone call from them, and they said, actually, there's this other pump that we don't, don't actually prescribe here, but we do have a couple of people on it, and it's called the

Scott Benner 54:47
architect, insight, okay,

Sarah 54:51
pump, and it has pre filled cartridges. There you go. So you literally just pop the cartridges in and. And fill the tubing and it's and it's done. Would you like to see that one? Obviously, I was like, Yes, please. She still had to wait another six or eight months. Brett, seriously,

Scott Benner 55:09
what are they doing? Are they bringing them in? Like,

Sarah 55:11
I don't know this, this time delay. I literally, have you

Scott Benner 55:18
guys heard of Have you heard of, like, overnight mail, just

Sarah 55:24
they they would have given us that we had the Medtronic, Medtronic in our house in the January, but when we had the fafn, had to give it back. We didn't get the other one until the September.

Scott Benner 55:35
Why did you tell them the truth when they told you they were going to take it back? Why didn't you say, Oh, don't worry. You know what? My husband's gonna do it. Because

Sarah 55:42
there was no physical way for me to do it when he wasn't here. Yeah,

Scott Benner 55:46
I know. But like, why didn't you just lie to keep the pump and then, I don't know, pay a neighbor to do it, or a homeless person or something like that? I don't know. Yeah, we just didn't think. We just, it was just, yeah, horrible. It was,

Sarah 55:58
it was horrible. UK, there's

Scott Benner 55:59
heroin users everywhere. Can you just walk out on the street and go, Hey, I'll give you and go, Hey, I'll give you $1 if you put this needle, they'll be great with a needle, like, they'll be able to, you know what? I mean, yeah, I don't know anything about England. Are there heroin

Sarah 56:11
users? No. I mean, I mean, my husband comes across them a lot, but that's his job.

Scott Benner 56:16
I'm saying he could have found one that would have been able to do this for you. Like, yeah, I just felt like in a world where you fought so hard, you gave up really easy, it felt like, is it because you felt bad about it being your fault?

Sarah 56:27
It's because there was no other option. In my mind. There wasn't anything else. If I if they're saying you cannot do this, there is physically, is no way you can do this. I was like, there is no way I've screwed it up for her. I'm wondering

Scott Benner 56:40
I could be wrong. I'm wondering if it didn't take out your resolve because you felt like it was your fault because of the visual impairment, like, did it like, sap your resolve? You know what I mean? Yeah,

Sarah 56:51
because I would fight about everything else. Yeah, that was my point. I just Yeah, I think it did. I think it did. Isn't it interesting?

Scott Benner 56:59
I can figure you out, but not me, yeah? Like, yeah. I don't know why. I can't take a compliment, but I'm like, Hey, I wonder if this is what happened with you. Okay, so what do you end up with? It works, good, yeah. So

Sarah 57:11
we went with the extra it was, it was a godsend. It was fantastic. And I was doing all the tools of, like, you know, temporary basal and extended bolus and all of that. We use all of the tools, even though, again, they were like, Well, you probably won't use these. Yeah, I use them. I used everything. If that pump can do something, I'm going to use it, right? So I went all in with that. And she used that for about a year, until, no 18 months. But after a year, we find started finding this problem with you would call tunneling, yeah, every like two days, we wouldn't get past two days. On the third day, guaranteed, something is going what wrong? Why are her numbers going up? This is not working. So we started the hospital. Just thought it was a bizarre thing. Like, surely this is not the only we're not the only family for this to happen to they were like, Oh, well, we can try a different length. I'll try different length cannulas. That was it. So from six millimeter to eight millimeter, I think it was, they changed that, and then it was still happening. After a few months, we were like, it's still happening. We just have to change our pump site on day two, otherwise we have problems. Oh, well, yeah, they didn't know what, what was going on. We'll try with us these different cannulas. We can try the true steel cannula, or 45 a different angled cannula, all of this. And I was like, Do you know what? This doesn't make sense anyway. So they were trying to push us to do all of these different things, different cannulas or different lengths, and change all of this. But then Poppy started saying, Do you know what this pump is really annoying me. I was like, What do you mean? Before she'd carry it in, like, a little kind of like her belt thing around her. Never had any problems. She would wear it during PE at school, do trampoline, but never had a problem. But she just started saying, it's getting in the way. It's always banging on me. It's always there. It's big. I can't sleep in certain positions the tubes there, you've had it for a year and a half, and you've never said this before. And she was like, well, it's bothering me now. So I thought, right, you know what? This is the ideal opportunity for us to kick off and say to the hospital, we're not happy with this. So the first bite, obviously, I said, right. You know what, all these cannula problems we're having, she started to say this pump is irritating her. It's getting in the way, it's cumbersome, it's inflicting she says it's affecting her happiness, because it's affecting her life, the way she can live her life. First thing they said was, well, you're in a four year contract. So she's still got to have it for another two and a half years. By

Scott Benner 59:35
the way, isn't it free? Who are you in a contract with

Unknown Speaker 59:38
the pump company? Apparently,

Sarah 59:40
they're in a contract with them. I don't know who's in the contract with who good. So that was the first pushback I didn't have that. I was like, Well, if she's not happy with it and it's still it's affecting her quality of life and her happiness, then we need to find a solution, don't we? Plus the cannulas are not working, whatever it is. How? However you want to look at it, we have a problem. So they went away with that. Thankfully, they came back and said, well, actually, there's been some issues with that pump and that they are recalling some of them. So really, we would want to actually encourage you to get off that pump sooner. So yes, we will authorize you to come out of that contract early.

Scott Benner 1:00:21
Nobody knows what they're talking about. Sarah, no one ever knows. Forget health care for a second. It's all let me. Let me tell you something I told my son the other day, the world is being held together by bailing wire, duct tape, bubble gum and a little bit of luck. Okay, so, like, there's just no one knows what they're doing. They just say something that they heard someone else say or that they think they're supposed to say. No one has an original thought. They don't take the reins. I mean, some people do, don't, get me wrong, but, but a lot of people don't, and then you end up in these situations where they say things to you, like, you can't,

Unknown Speaker 1:00:58
uh, you can. You know, have

Scott Benner 1:01:01
you tried this? Try that. Try this. We don't know. Like, no one knows anything. They don't understand what to do next. Is very frustrating. I just you know, especially when it comes to health like this. So what'd you do? Did you just, like, Did you you go crazy? Did she get Did you finally try to drive and just drive the car right through the right through the building, exactly? Stop being exactly. Give me what I need. Oh, my God, no. So how does this how does this all work out? Like, how do you end up? Because I'm assuming you end up with omnipot,

Sarah 1:01:30
yeah. So thankfully, I had started listening. So this was all I'd started listening to you in the October of 2022, and this is all happening February. February was when she started having all the issues. So in my mind, I'm already an OmniPod person, but obviously that's not my decision to make, and within reason. So she's What is she? Then, seven?

Scott Benner 1:01:58
No, yep, seven. So she's seven

Sarah 1:02:01
and a bit. So by the when she starts saying, all this or this pump is not getting on, I'm not getting on with this pump, it's music to my ears, because I'm like, I already want you to have OmniPod, but the hospital was trying to push T slim. Clearly, they were all in the new whatever, the new control IQ, and that they were loving it. They'd approached us. They'd approached us and said, like, we're we're loving this. This is the new way forward. Once you finish with Rosh, we want you to go on this. And then we had all these problems. And they said, right, we want you on this control IQ, it's all singing, it's all dancing. And I said, Okay, we're gonna have the same issues with me filling this. And they were like, Oh, well, no, it should be fine. I actually posted in the juicebox group stay in any visual impairment that we're looking at. Tea slim, yeah, tea slim and omnipot, what? And loads of people helped with both. There were like filling tools and filling aids and all this for the tea slim. But lots of people said just the omnipot is just, you don't even need to be able to see to do it. So we did get the demo using your link. Thank you. Of course, OmniPod, com, forward slash juice box. Went and got the demo. We went and got the demo pod.

Speaker 1 1:03:08
She loved it. She was like,

Sarah 1:03:11
I can't even feel it's on. I think we put one on her. They send you two. I'm sure they sent us two, yeah. So she could trial it for like, six days, rather than just three, she had one on her tummy, on her butt, and either way, she was like, I could sleep on it. It's not in the way. It's amazing. So we went straight back to our hospital team. We're like, yes, she wants this. We want it, sort it. So that was February or March. And so again, they dragged their feet, and she finally got approved for it, and we got it, they still made us do a saline trial, even though she was already on a pump, a functioning tubed pump. What is the actual point? But anyway, so that's them. That's what they do. That's

Scott Benner 1:03:55
the point. The point is, that's what they do. There's no thinking. We

Sarah 1:03:59
don't need to do that, yeah, because she's already worn at one No, no, she had to do a second time. Anyway, June, she got that. June 2023, and then she got moved over to the OmniPod five in the August. So she literally only had a dash pod for like, two months. And then we went on OmniPod five. And again, it's not affected her, A, 1c, at all. It was in the low fives. It's still in the low fives. They said, Oh, well, you might not get as good results with the OmniPod five as what you were doing. I was like, Well, no, not if I leave it to do what it wants to

Scott Benner 1:04:35
do, but I don't, and you've been having good success with it, yeah. Well, with it, I help? Yeah, I saw somebody the other day. They're like, Oh, this isn't keeping my blood sugar where I want. I'm like, Are you bolusing? Like, we just think it was going to be magic, you know, like, it's, it's, and not just OmniPod five, by the way, all those algorithms, right? Yeah, do it yourself. Tandem OmniPod, they all, they need you to intervene. So. Times there's, there's variables about the food that you can't translate to the pump just by saying a carb count sometimes, you know. So that's really so one

Sarah 1:05:09
thing, one thing I have to sing the praises of, for the OmniPod five really about was, again, something you helped us with. So she does on a Monday night. She does Taekwondo, which is 90 minutes martial arts. And there's an adrenaline rush in there, and we didn't know what it was. She only started it about a year and a half ago, and the first few times she went, I was like, What is this? What is happening? What is going on? She walks through the door and she skyrockets. She hasn't had her tea for two hours. We did the right but I didn't understand what what it was. And then I then I worked out it was adrenaline, but I didn't know how to deal with it, until you said bonus for a juice box. Because if, if she doesn't have the adrenaline, you can just give her the juice box. And that was like

Speaker 1 1:05:53
light bulb moment. That

Sarah 1:05:56
is what we did. We actually had to bonus for two juice boxes. That's how much adrenaline she had. Wow. But we would do it.

Scott Benner 1:06:02
Sometimes you have to catch it, and sometimes you don't, right, yeah, yeah, yeah.

Sarah 1:06:06
But since so when she changed, so we did that for about nine months, it was working. She we just have to bowl us with two juice boxes the minute she walks in, leave them on the side, because they don't stay either. It's a drop off. It's not sit and watch them. It's, I'm going. So the teachers know she's I text her. We tell all about texting diabetes if she needs to do something, I've text her for that hour and a half. But yeah, so we did that for about nine months. Then she got the OmniPod five. So September, her first lesson, I was like, What do I do? What do I do? I don't know. Should I still put in that, put in that two juice boxes, or should I not? And I was like, I'm really gonna have to sit on my hands. This is so hard not to. I don't want to just watch it, because I don't want her rocketing up to 250 when I know she doesn't need to. But I thought, Okay, I did sit on my hands, and nothing happened. She She didn't go above 140 interesting. But the whole and I was like, That can't be right, how, how, how. So I stayed there for the first week, and then after that, I just dropped her off and touch wood. Apart from this one week, it has handled it every single time. Wow. And she does drop at the end, though. So the last 510 minutes, she starts to plummet. Little bit of juice. I just Yeah, little bit, or she's got glucose tabs. So it sorts out adrenaline, but it can't, it can't sort out growth hormone. There's no chance in hell that it can sort out

Scott Benner 1:07:31
that's a lot of impact. The adrenaline also spikes and kind of it goes away very quickly too. When the adrenaline is gone, the lift from the adrenaline is gone, which is why you're seeing a low afterwards, because they can't it. Can't know. It's expecting that high to come back the way on the curve that it expects, and then it the generally goes away, and you drop really quickly. It's hard, hard to deal with, but it sounds like you're doing a really good job with it.

Sarah 1:07:55
Yeah, most of the time again, now this, we've mastered it. I think most of the time. Sometimes I'm like, why is it doing that? But, and, no, I do know better than you most of the time, Mr. Algorithm, but yeah, it's definitely a godsend. I wouldn't go back to the sleepless nights 100% not. It's definitely, it's definitely, yeah, you can use it to your advantage, and you can work with it and not fight against it, excellent. It's not magic. I would, I would love it to have overrides, like you talk about with Luke, with the, you know, plus 130 you know, plus 30% for and all of that. I would love it to have that. And I hope that's something that will come in the future. It and it lower targets. I do think it does have to have that moving forward.

Unknown Speaker 1:08:39
Yeah, yeah.

Scott Benner 1:08:40
I mean, I mean, I hope, I hope they continue to refine it. I hope they all continue to refine all these algorithms. Honestly, they're going to have to, because one of them is going to do it, and they're all going to think, oh, we can't, we can't, not make ours better. They're going to have to keep trying. You know, I think it comes slowly, obviously, but you're used to slow, because it takes you a year to get everything. So it doesn't really matter we didn't really talk about the one thing that you asked to talk about and keep getting distracted. No, don't be you're doing great. Do you want to I'm a little low on time, like, do you want to go over it, or do you want to let it go?

Sarah 1:09:14
Yeah, there were, there were two things I wanted to incorporate, which I don't think we're going to have time to do both of them. But one thing that I think is not talked about as much as it needs to be, and I'm sure lots and lots of people feel this, is the fact of burnout, or the fact that in most situations, one of you has to take up more of the slack of diabetes than the other. So I do hear lots of people say, Oh, we've got a 5050 split. And I do half, and I and the other does half. And I think really, is that possible? If you're you know is, are you both working part time, or, if someone's working full time, and the other one isn't, how the hell do you get a 5050 split? I don't know many families. Who have a 5050, split in parenting? I'm not, you know, one parent will majority, do the majority of something. Okay, so I'm not set. So, for example, you know, the mom, for example, the mum. The mum might sort out all the school uniforms, and she knows what shoes she needs to buy them, and she knows that they you know, or she'll do all the meal plans, or she'll do the school lunches or whatever. Or again, if it's stay at home, dad, he'll be doing all of those kinds of things. He knows what uniform needs to be bought, booking school clubs, booking activity. I can't envisage that. It literally is a line down the middle 5050 with every parenting situation. And why it would be diabetes, I don't know. Yes, I was at home with poppy for six months. So obviously, I got a handle on it more than Chris, because he was at work 24/7 Yeah, when I started learning so reading the books, looking on the internet, found the juicebox. Listen to all the podcasts. And, I mean, listen to them, as in, I beasted myself with them, and listen to all of them in less than a year and a half. Wow. So I was listening to five six hours a day. I'm actually up to speed now. I got up to, I'm all caught up the other way, like last week. I was like, I have to finish all of these by the seventh of March, when we're recording. And I did, but now I'm like, don't have Scott in my ears five hours a day. What's going on?

Scott Benner 1:11:19
Is it strange for you to be talking to me? Yeah,

Unknown Speaker 1:11:23
because I'm

Sarah 1:11:24
only, I'm only listening to hearing you, like, for an hour, one hour a day now. And I'm like, It's really weird, but you're not

Scott Benner 1:11:31
there. I'm gonna go tell my wife that there's a person in England that is upset that she can only hear me for an hour a day. And then I'll, I'll time how long she laughs for, and then I'll get back to you and tell you, Okay, she'll be like, You know what she'll say? You should tell her to move here and live with you. That's exactly what she'll say. I'm amazing. I'm genuinely touched that you've listened to the entire podcast. That's really something, and it's, honestly, it's helping you, right? What's Poppy's a 1c last one, 5.3 Yeah, good for you. That's wonderful. Congratulations. That I feel good about, isn't that interesting that I'm like, Oh, that's nice. I can feel nice about that. Okay, yeah, all right, so you're saying that it's not a 5050, split in your house. But what did you tell me do? How much of what you told me before we started recording? Do you want to say here? This is how I feel. I feel like it's assumed that I've got it like, for example, this gets home from work. I'm doing

Sarah 1:12:30
the tea, so I'm cooking the tea. So obviously I'm carp accounting, doing that. But if I need to go out of the house for any reason, it still does fall to me. So many, times I've gone out. I need to so I work from home, but I need to go. I need to go out. I've gone to the shop so and, and it's I'm getting the phone call, or I'm getting the text, or what do I do in this? And I'm like, you do know what to do in this situation, because you've done it before, but you feel like you need to check with me. How many cards is this okay? Well, if I was at home, I'd be reading the packet. So can you not read the packet? Why do you need to ring me to ask me what that is when you can find that information yourself.

Scott Benner 1:13:06
So there's one of two. There's one of two thoughts here, like, is he just nervous to make a mistake and hurt her, or are you lording over him and you don't realize that he doesn't want to make you upset? So

Sarah 1:13:19
that's what. Yeah. So I've asked him about this. I have said, and I told, I told him before today I did say I am going to be speaking to Scott about how I feel the burnout,

Scott Benner 1:13:27
and you seem to be enjoying yourself. Yeah, okay,

Sarah 1:13:31
you don't do as much as I he said. And he said, No, I fully get it. So it's majority on you. And you know, I work full time, and I haven't got the time, I haven't got the time to look at it as much as you look at it. So therefore I know I'm not on the same page as you. I'm not up to speed as much as things with things as much as you are. Okay, my opinion is, if you listen to all the pro tips episodes, you would be up to speed. But he has listened to maybe three of them, and I did, did harp on about it, and he has made the effort to start, however, yes, yeah, I do appreciate he's got a 70 hour a week job. He can't. He's got a 45 minute drive to and from work, which I said, Well, that's two podcasts a day, yeah, but he doesn't, well,

Scott Benner 1:14:12
I agree with that, by the way. Also, is he not in a police car all day? No, oh, he's on on foot,

Sarah 1:14:20
he's in, no, he's in the station interviewing. Oh, okay. Oh, okay. I

Scott Benner 1:14:24
see. So you can't listen to a podcast while he's working,

Sarah 1:14:27
right? It's just the drive to and from work. But he says he doesn't get signal. I said you don't need signal. You can download it onto your phone, and then you can listen to it without internet. But he hasn't managed to, hasn't managed to master that. He hasn't

Scott Benner 1:14:39
figured out the internet yet? No. So do you think he doesn't want to and you're upset by that, or do you he says

Sarah 1:14:47
he does want to. I think he does want to. He says, he says he does think that he's going to get it wrong. He said, if she's with me for a day, I know it won't, her numbers won't be as good as when she's with you. I'm like, Yeah, but why not?

Scott Benner 1:14:59
What feels pressure by it Don't,

Sarah 1:15:03
don't feel pressured, and don't feel like I'm gonna berate you or criticize everything I want you to try. All right, so

Scott Benner 1:15:10
Sarah, two things. I've been married for 27 years, so let me give you my thought here, if I told my wife, don't feel pressured when she felt pressured, she'd leave me. And if that's for sure, she'd be like, Oh, is that your advice, idiot? And that would be the end of it. And so, like, I get your point. Like, just try. You'll be okay. You know that you have that comfort, right? Just listen to the like, the bowl beginning series. Like, he could certainly, like, commit to that, and then once he gets through that, give him the pro tips, and then he'll be okay, then he'll feel more confident, and he'll try the things that you're talking about. Like, he doesn't have to make me, he doesn't have to listen to the whole goddamn podcast. He could listen to some of the series. They would probably help him. Yeah. I mean, I think you listening to the podcast literally straight through. Listen. I haven't said this in a while, because there's like 1150 episodes now, but I absolutely believe if you go back to the first one and listen to this podcast, you're gonna have an A, 1c, in the mid fives. I really do think you will. And it's not because the secrets, the secrets are dripped through, but it's the way you pick up the information by listening long term and becoming immersed in it for a while. And you don't have to do it forever. You know what I mean? Like, I mean, it took you a year or so, that's what by the way, I really appreciate that. But, like, you know, I know what a commitment it is, but look how it paid you back. I mean, really, what are we talking about? You listen to a podcast for a year and a half and now your kids, a 1c is 5.3 on an algorithm that some people will tell you can't get a 5.3 a 1c that easily, you know? So you understand what you're doing. You literally became me in a year and a half as far as diabetes goes. So what it's amazing you do. So that's it. Tell him to listen to the series. Also tell him you won't have sex with him if he doesn't do it. Doesn't do it. That's pretty much the fastest way to get this done. Seriously, I don't know why. Again, I've said this before. I'll say it again. If I was a girl, I'd have everything I wanted. So I don't know. I don't understand when you guys are like, I can't get him to do it. I'm like, Sure you can. You could make me like, I would hit a homeless guy with my car if I was told to for sex. I mean, I wouldn't kill I wouldn't kill them. No, I wouldn't kill them. But, I mean, I'd like, you know, I don't come a little, like, if I knew they were going to be okay, you know what I'm saying? Like, there's not a lot anyway, use your power, okay? And then, by the way, don't pay at the end. The end go. I shouldn't have had to have done this, although your mom would have, she was a player. A player. So has your mom not been gone long enough for us to joke about her? I apologize. Oh, then that's fine. Yeah, all right. Is there anything we haven't said that we should have and do you want to hear the three titles I have written down my possible tidro Show episode. I

Sarah 1:18:02
have one, one thing that I will try and condense as much as possible for you. Go ahead, Poppy started to get anxiety, which I think again, is a thing that we would never want our children to have. But when she was diagnosed, she used to have school dinners, and we were very much like nothing's going to change. Diabetes doesn't change. Make your life change all this. So we wanted her to stick with the school dinners, not have to say, No, you must have had lunches now, because diabetes doesn't make you have to change anything. So we were adamant that she stuck with it. But it was really hard. So the teachers had to learn how to look at what she was going to eat on her school dinner. Carb count. All of this. It was a work in progress, and they did as the best they could. Okay. However, after a while, it materialized that she told me, and I mortified me, she'd always been really good at, you know, they would put her insulin in to put her to the end of the queue, so she had a bit of a pre bolus time, and then she would eat her food. Now she told me that she was forcing her food down because she knew she had to, because of her insulin, and that it made me feel so sad. It's gonna

Scott Benner 1:19:14
make me cry. I don't know why, damn it,

Sarah 1:19:16
I felt so guilty because I just thought I was like because I said, you've always been a really good eater. Because she that was it. She got ill. She had a little tummy infection, and it was making her have a an upset, sore tummy, so she didn't want to eat at school. And so they'd rung me and said she only wants to eat half of her lunch. We've already dosed for it. And I was like, right, okay, that's fine. Just can you get her to have a juice? Yeah. So it was not, it was not a problem, but the same thing happened the next day, and then she was crying, and she was like screaming, like, I can't eat this. My tummy hurts all of this. It's like, okay, don't worry. It's fine. And when she came home, she said, You forced me to eat I didn't. I just said, could you possibly try to eat this and have a juice if you can't? I said, what? I. Don't know why this is happening, Pops, because you've always been really good with your food. It's just she told me. I said, I've forced myself to eat food at school. And I was like, What do you mean? She's She said, I know that if I have insulin, I have to eat it. So even if I'm full up, and even if I don't want to eat it, I will make myself eat it. And I thought, I can't I can't believe this has been happening, and I had no clue. So eventually then, so we said, we said, spoke to the teachers. We found out she did have a urine infection, which had caused her to have a stomach ache. So I said, right when you take her down to lunch, if she only wants to eat half a portion, just dose for half a portion, let her decide before you tell her she's got to eat all of it, right? Well, it seemed to be like all the staff in the in the cafeteria were like, eagles. They were watching her. And they were like, flocking around her and going, you have to eat that Poppy. You must eat that like, really putting pressure on her. Oh, my God. And this was making her really, really, super anxious. Someone is we'd always said to her, Carrots. Carrots are carb free. Now, I know they do have a tiny amount of carbs, but the amount of portion that they give them at school, like a teeny, tiny bit of carrot, we just in, in her mind, Carrots are carb free, right? So this dinner lady had come over and gone, do you need to eat your carrots? And she was like, where? But they're carb free. She like, you need to eat those or you're not going out to play, and it just sent her over the edge. So is that with that? Was that? Was it we we said people need to stop talking to her about her lunch. And the same thing, they said, no, okay, no, but I want to talk to her about her lunch. And then the next day, someone said, she said, um, I only want half that portion of peaches. And the lady had said to her, my three year old would eat more than that. You need to eat more than that. Oh, Jesus. So it was, it was

Scott Benner 1:21:44
just all this more people who don't know what they're doing. It's, I told you, it's everywhere. Also that really made me upset. I don't know, but it really hit me hard when you said that. Jesus, yeah. So

Sarah 1:21:53
I just thought, right, you know what? We drew a line. We just said, Right? Geralt pulled it. No more. School dinners, packed lunches, straight to Pat lunches. And she now it's fine. The problem is totally gone. She makes her own pack lunch every evening, so she chooses exactly how much is going to go in her lunch, and she knows she's going to eat it. Yeah. And then we told school, so I had to speak to the headmistress. I said, I don't want anyone talking to her about what she's eating. They all need to back off. So she's allowed to use her phone during lunch now. So now during lunch is they they put her insulin in. At lunch, they set a 15 minute timer. She goes out to the playground, she goes in and eats. She texts me, saying, all done, or if there was a problem, she'd say, I couldn't eat my blah. And then I would say, right, okay, that's half a juice, or that's a go and have that instead. So no one is in the picture, other than her and me. We text, that's good. She does her own. No one else is involved, and it's alleviated so much of it, yeah, it's all gone now. No, I'm happy she I was like, this was a slippery slope into problems.

Scott Benner 1:22:55
Oh, an eating disorder, for sure. Yeah, yeah, on its way, because all these other

Sarah 1:22:59
people were telling her what she had to do, looking at her cross, examining her, forcing her, and I was like, I can't this cannot happen.

Scott Benner 1:23:06
Yeah, oh, I'm glad you figured that. I'm glad she spoke up. I'm glad you figured that out. I'm glad you shared it. Yeah, no, thank you. Okay, all right, all right, I'm a little long, but here are my four choices. You're gonna help me pick. As you know, the crack is on my list. Things you don't know are on my list, cooking, the tea, spanner wrench. All singing, all dancing. I'm leaning towards spanner

Sarah 1:23:35
wrench, wow, because you spanner wrench, because you

Scott Benner 1:23:39
use the word Spanner, and it threw a spanner into it. Here you would have said, in America, you would have said, you throw a wrench into it. I know that a spanner wrench is a spanner wrench because I was a fireman, and that's the wrench name to open the hydrants. The only reason I know the word Spanner. So what are we going to call this episode? Cooking the tea is probably obvious though. Maybe we want that one. What do you think? Oh,

Unknown Speaker 1:24:07
well, we

Sarah 1:24:09
didn't get to the ones that I thought that you were going to choose, because we haven't go ahead. I didn't incorporate into with Poppy's anxiety. So what she does every night now so that she's not worried about the next day, because she she, she always says, Oh yeah, that was it. She sometimes if she can't sleep at night, and it's not to do with blood sugar levels, but sometimes she's had occasional evenings where she can't sleep and she's just floating and turning for a while. So she has this ritual she does every night. So she says, I need energy for tomorrow, don't I? She always asks me this at bedtime, Mommy, I need energy for tomorrow, don't I? And then I will be able to eat tomorrow's lunch, and everything will be a fantastic day. And I want to relive the day, because it will be so good. So energy for tomorrow was, was my energy? I didn't

Scott Benner 1:24:54
even get to it, yeah, but you didn't say it. That's okay. We'll say, I like you. I It's on my. The list, we'll see what happens, Sarah. Thank you very much. You were really fantastic. This was wonderful. I appreciate you taking the time. What time is it? Where you are right now?

Sarah 1:25:08
It's now just gone, half past three.

Scott Benner 1:25:11
Okay, all right, well, it's only 10.

Sarah 1:25:12
I'll ask you one question at the end.

Scott Benner 1:25:14
I don't see why not go

Sarah 1:25:17
ahead. One thing we're really struggling with, and I haven't mastered this, is if her blood sugar is on the low side before a meal. So say she's ticking over at like 75 4.2 ish, nice and flat. But if you give the normal pre rollers time, so we give 1520 minutes, if we give 1520 minutes, she's going to go down and hit

60 or something. Do you instead of

doing because what? Obviously, if we shorten the pre bonus time, she'll rock it out. So do you shorten the pre bonus time and then add on extra so a super bonus? What would I do there? We can't, I can't seem to work it out. Because if she's 4.2 I know she's gonna drop massively if we give a 20 minute bolus,

Scott Benner 1:26:04
why don't you just cut? Have you tried, first of all, have you tried just cutting, just a few minutes off of

Unknown Speaker 1:26:08
it? She still seems to go quite

Scott Benner 1:26:12
down to 60. And is she dizzy

Speaker 1 1:26:13
at 60? No, she would not fit.

Scott Benner 1:26:17
And how long does she stay there? Only a minute or two until the food hits her right? Yeah,

Sarah 1:26:23
maybe two rotations of the Dexcom. So

Scott Benner 1:26:25
then, if I take the number 60 out of this equation, are you comfortable with her bolus? Yeah, it's the number you're uncomfortable with.

Sarah 1:26:33
It's the number, because the hospital nagged me at about numbers, and I'm so paranoid about not having any threes. They hate the threes. They hate the 60s. So

Scott Benner 1:26:43
all I can tell you is this, when I see Arden bolus sing, and she goes to like, 65 like, in that range for a couple of minutes after a big bolus, and then I watch it come back up again, I think, Oh, this is going to be a great bolus. She's not going to get high after this. Yeah, that's how I think about now, if you're getting lower than that, if she was dizzy, I would, if any of that was happening to Arden, I would, I would change my tune about that. And if you're telling me that making it a little shorter results in a spike, then again, I would do that. Now, if it really bothers you, she could bolus. Have a bite or two of something and wait 20 minutes, and that might be enough to balance it out. But, I mean, that seems a little cruel to let her start eating and then tell her to stop again. Yeah, I would say that if she's not getting lower than 60. Have you ever checked it with a finger stick to make sure? Yeah, and she's about 60

Sarah 1:27:41
and about that, yeah, it doesn't generally go below that, yeah.

Scott Benner 1:27:45
So this is not advice, and I'm not a doctor, but I wouldn't change anything

Unknown Speaker 1:27:48
about that. Probably.

Scott Benner 1:27:50
Yeah, okay. But I mean, otherwise, you're gonna have to the, I mean, the other thing you could easily do, it, mean, it's a pump, right? So if it's, if it's a, let's just make up a number. If it's a four unit pre bolus, you could put, you could put three units in, and then wait 20 minutes, and then bolus the fourth unit and then eat. Okay, that would probably work, because then you you weaken the pre bolus a little but not enough to it would still stop the spike, and then the secondary bolus would only be a few minutes behind it. That might be the best idea if you're trying to avoid the number, okay, split the bolus a little bit. That makes sense. Yes, yes, I'm not a doctor. Thank you. Thank you very much. Did you enjoy this? Yes, oh, good. I'm glad absolutely all right. Hold on one second for me. Okay, okay, Sarah, we're recording again real quickly. I meant to say something to you when you said about Poppy being anxious. Have you checked her thyroid levels? Hang on. Let

Sarah 1:29:01
me think, yeah, her last one was 2.2

Scott Benner 1:29:03
okay. TSH, 2.2 Yeah. Has it been rising?

Sarah 1:29:11
I don't know what the one more before that was. So that was, what month are we in? Now, that was October. They only do it once a year. Yeah, I haven't got the one from a year ago. See if

Scott Benner 1:29:21
you can get them to sneak in another one, because if her TSH is going up, if she's having thyroid issues, anxiety could be a part of that. Okay. And if she's having trouble sleeping or feeling does she feel rested after she sleeps? She feel tired? No,

Sarah 1:29:36
she says she's okay. She just occasionally has had it. We attribute it. We attributed it to once she had a fizzy drink, and we think she's, like, super, super sensitive to caffeine, and she couldn't get to sleep that night. But it does just seem to happen, like once every few months, she just cannot sleep. And I suppose that happens to all of us. Oh, yeah,

Scott Benner 1:29:56
that's fine, but the anxiety, if that. Sh keeps creeping up, or you see any other thyroid symptoms, please like, get that addressed and see if that doesn't help the anxiety.

Unknown Speaker 1:30:07
Okay, okay, I will do all right, thanks. Sorry.

Scott Benner 1:30:17
If you're ready to try America's most loved food delivery service, just check out hungryroot.com/juice box. Plan start as low as $69 per week. You can skip a week or cancel at any time. Hungryroot.com/juice box. I want to thank the ever since CGM for sponsoring this episode of The juicebox podcast, and invite you to go to ever sense, cgm.com/juicebox, to learn more about this terrific device, you can head over now and just absorb everything that the website has to offer, and that way you'll know if ever sense feels right for you. Ever sense, cgm.com/juicebox, a huge thanks to touched by type one for sponsoring this episode of The juicebox podcast. Check them out on their website, touched by type one.org or on Facebook and Instagram. Hey, thanks for listening all the way to the end. I really appreciate your loyalty and listenership. Thank you so much for listening. I'll be back very soon with another episode of The juicebox podcast, if you have type two or pre diabetes, the type two diabetes Pro Tip series from the juicebox podcast is exactly what you're looking for. Do you have a friend or a family member who is struggling to understand their type two and how to manage it? This series is for them seven episodes to get you on track and up to speed. Episode 860, series intro. 864, guilt and shame. Episode 869, medical team. 874, fueling plan. Episode 880, diabetes technology. Episode 885, GLP ones, metformin and insulin and in. Episode 889, we talk about movement. This episode is with me and Jenny Smith, of course, you know, Jenny is a Certified Diabetes Care and Education Specialist. She's a registered and licensed dietitian, and Jenny has had type one diabetes for over 30 years. Too many people don't understand their type two diabetes, and this series aims to fix that. Share it with a friend or get started today, the episode you just heard was professionally edited by wrong way, recording, wrong way, recording.com, do.

#1282 Weekly News 8/12/24

For the week of August 12, 2024

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Hello friends and welcome back to the juicebox podcast.

Lovely to see you again. This is the News episode for the week of August 12, 2024 these are the diabetes related news stories I found interesting. Nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan. If you'd like to help with type one diabetes research, you can do it right from your home without ever seeing a doctor by going to T 1d exchange.org/juicebox when you get there, just join the registry and complete the survey. This should take you about 10 minutes. Your answers to very simple questions will help type one diabetes research move forward. You need to be a person who has type one diabetes or is the caregiver of someone with type one and a US resident to fill out the survey. T 1d, exchange.org/juicebox, please take those minutes. They will really help when you place your first order for ag one, with my link, you'll get five free travel packs and a free year supply of vitamin D drink, ag one.com/juice box. This episode of The juicebox podcast is sponsored by ever since the ever since CGM is more convenient, requiring only one sensor every six months. It offers more flexibility with its easy on, easy off, smart transmitter, and allows you to take a break when needed. Ever since cgm.com/juicebox, Hey everyone. I did some recording on this file earlier in the week, but then found this news, which I'm moving to the front, which doesn't mean that the stuff at the back is not important, but it's going to sound a little disjointed after this part's over, you'll understand why in a second I've seen an article that I'm just I'm very excited about. This is from qz.com it's quartz titled, getting your hands on zepbound may get easier this year with new single dose vials. Now, for anybody who's been using a GLP off label with their doctors help, of course, to help lower their insulin resistance, who's type one, but you're losing too much weight because you don't need the full 2.5 or five or whatever they're giving you if you know you're having impacts beyond insulin resistance, and you think, Oh, I wish I could just take a little less of this or spread it out a little more. But I wish I didn't have to just do the injector pen every time. I wish I had a little more control. I wish my doctor could help me dose this differently. If you've had that thought, listen to this. Eli Lilly will start selling single dose vials for starter doses of zepbound in the coming weeks. Lily announced on Thursday that it finally is launching single dose vials for starter doses of blockbuster weight loss drug zeppbound, which, of course, is just mandarno marketed for weight loss. The move will potentially help meet stronger demand for the popular drug. I don't care what this article says. That's not why I care about it. The company said its second quarterly earnings report, said in its second quarterly quarterly earnings report for 2024 that it will start selling in the US single dose files for 2.5 and five milligram doses of set bound in the coming weeks. The news comes as the pharma giant said sales of highly sought after diabetes and weight loss drugs during the second quarter outperformed expectations, resulting in their raising their revenue. Outlet. That's money I don't care about that. Sales of Manjaro in the quarter reached 3 billion. Wow. Hold on a second blowing class drugs. I know all that skyrocketing demand frustrated. Zipbound users have been calling on the company to address the supply constraints. All right, look, I don't care about any of this, and this is not advice, medical or otherwise, but if you're a person who's been wanting to micro dose, GLP, this has got to be incredibly exciting news for you. I know that my daughter is using it with a prescription through a doctor covered by insurance, even not ZF bound, but manjarno, and her dose at the lowest dose is it's too much for her, and so we've been trying to figure out ways to to to impact that. But you know, so far, all you've been able to do is just stretch it out, not do it every week, do it a little longer. But all that does is it gives you a bunch of days up front of coverage, and then days in the back and that don't have as much coverage, and then days that have even less coverage, if not none, until you put it in again. It's not a perfect system. I'm sitting here watching it, thinking over and over again. I wish I could just draw this up with a different needle and use less I cannot wait to talk to her doctor about this. This is, I think, really exciting and awesome news. Once again, the single dose vials of zepbound, introduced by Eli Lilly, are available in 2.5 and five milligram doses. These vials are intended to make the drugs more accessible and easier to manage, et cetera and so on. That's it. The article is called getting your hands on zepbound may get easier this year with new single dose vials. Go ahead and Google it. I think it is insanely exciting. While we're talking about Eli Lilly. This is from ABC News. Eli Oli warns in an open letter on Thursday about the dangers of fake and compounded versions of its diabetes, weight loss medications. Manjarno and zepbound companies announced a lawsuit against wellness centers and medical spas advertising the drugs. Eli oh the Novo Nordisk, which of course, is a competitor. They sell ozempic And we govi have also filed these lawsuits to med spas supporting who are selling knock off versions. Looks like they're protecting their investment here, and the warning from Eli Lilly says the company is deeply concerned about the proliferation of online sales of fake versions of its products, and that people should never put products labeled research purposes only and not for human consumption into their bodies. That's just good advice no matter what. Anyway, that's the thing. Go ahead and check that out if you want. ABC News Eli Lilly warns about dangers of fake and counterfeit Manjaro and zebound. And now the rest of this episode is going to be it'll feel disjointed for half a second because I recorded that stuff first. But just get paid. The podcast is sponsored today by ever since CGM, ever since cgm.com/juicebox with ever since there's no need for frequent sensor changes, no more sensors falling off, fewer failed sensors and less skin irritations, and that means more comfort with Eversense. You only need one sensor insertion every six months, and there's no need for constant sensor changes, which means less hassle. There's also no need to carry extra sensors with you, so that's less stuff to worry about, and you can say goodbye to unexpected disruptions from sensors falling off or being knocked off, because the Eversense CGM is implantable and the sensor stays comfortably in place for six months. The Eversense sensor is incredibly durable, and of course, that means fewer frequent unexpected sensor errors that happen before the end of the suggested wear time. But what do you really want to know about accuracy the ever since CGM performs exceptionally over its six month life. If you'd like more details or are interested in getting started, use my link. Ever since cgm.com/juicebox, I'll be telling you a lot more about ever since this year. So make sure you pay attention to upcoming advertisements. There you'll learn about the implantable sensor, the smart transmitter and their mobile application, the Eversense CGM lasts up to six months, eliminating the hassle and discomfort of frequent sensor insertions. Simply put, it makes managing your diabetes so much easier. Eversense cgm.com/juicebox, you let's take a look at the News for the week of August 12, 2024 what do we have here? Oh, want to start simple. Looks like oh my gosh. How do you say this umia Is that it omia Omio, Omio University. This is in Sweden. It's spelled U, M, E, and then it has a funny a with a hat. Anyway, they've done a little study, and research has uncovered that there's a potential link between type two diabetes and Alzheimer's disease. The study found that high blood sugar levels may hinder the body's ability to clear beta amyloid proteins, which are associated with Alzheimer's. This, of course, suggests that better blood sugar management could reduce the risk of developing Alzheimer's. Not a ton with that, but I like there's research in that space. Next we're going to move on to the ever since CGM. Let me find this article for you, and I'm going to finish up here by with, by with I'm going to finish up here by telling you about two trials that I learned about through diatribe. First one is a new trial for the test ozempic for kidney disease and type ones trial name, let's see trial of semiglutide for diabetic kidney disease in type ones. I may have talked about this one before, but I wanted to put it out there again, if I haven't. Researchers are recruiting 60 adults with type one diabetes and kidney disease for the trial, participants will either receive ozempic or a placebo at the end of the 20. A six week trial. Participants will undergo an MRI scan to measure how much oxygen is delivered to the kidneys and used by kidney cells. Kidney oxygen. Oxygenation is an important indicator in kidney function. I'm reading directly from diatribe. By the way,

researchers will also measure uacr, an estimated glomerula, glue, Merola filtration rate, measures the amount of protein in the urine. This is interesting. You should like Google this and find that a diatribe interested participants. You have to be 18 years old and have been diagnosed with type one diabetes for at least five years, have an A, 1c under 9% have a uacr of at least 30 mg G and an E, G, F, R of at least 45 milliliters per minute. And then it says like 45 milliliters minute, 1.73 m2 I'm sure if you have that, you know what that is. And are you stable doses of blood pressure and cholesterol. Are you on stable doses of blood pressure and cholesterol lowering medications? People who have had recent diabetic ketoacidosis or a history of pancreatitis are not eligible for the study. There's a full list of inclusions anyway. This is cool. If I think if you Google new trial tests ozempic for kidney disease and type one diabetes. You're going to come to it. I'm actually going to test that for you, to let you know that will definitely take you to the diatribe article about it. Go ahead and take a look. I think that's pretty cool if you need it. And another study, again from diatribe, new study test. I got it from their website, they're not doing the study. New study tests liver targeting insulin and type one diabetes. If you're an adult who has type one diabetes, you may be eligible to participate. Trial name is phase 2b trial comparing HDV, insulin LIS Pro to insulin lispro in adults with type one diabetes receiving insulin, decludec, o, p, t, I, two. Wow, who named that one trial sponsor is diameter pharmaceuticals, a study researching whether administrating a liver targeting insulin called h, d, v, l, insulin will improve glycemic control by reducing nocturnal hypoglycemia while maintaining or improving HBA 1c and people living with type one diabetes. How does the trial work? Researchers are recruiting roughly 230 adults with type one diabetes, ages 18 to 79 who are on multiple daily injections. Participants will be randomized and either receiving the insulin Lisp bro or insulin or the HDV L, insulin must pro in combination with basal insulin traceba, all participants will wear a continuous glucose monitor. The entire trial will run eight months, inclusive of a screening and follow up periods. This trial will include a screening period of up to three weeks, a run in period of two weeks to access eligibility and to transition to use of the insulin, etc, and the CGM, 12 week dose optimization period, a 13 week maintenance period, a two week transition follow up period, wow. 18 to 79 type one with a confirmed blood C peptide, result of negative point six or less than point six, you have to have been on insulin for six months, are willing to use the designated CDM device and for where to go and forego an insulin pump or automated insulin delivery system through the duration of the study, you need an A, 1c reading between 6.5 and nine, and you need to be using a total daily insulin dose that is 1.25 units per kilogram per day or less. People who have used weight loss medications, dietary supplements for weight loss or glucose lowering, medications outside of insulin 30 days prior to the study are not eligible. Sounds like if you're using a GLP, you ain't gonna be in it if you're interested. Google new study test, liver target, targeted insulin in type one diabetes. And I have one more thing for you. I don't know if this is news or not, but it's a press release. I think it's exciting and a little telling. Beta bionics, who of course, made the eyelet pump, is announcing that they've reached their 10 1000s. 10 1000s, 1000s. Oh, my God, the 10th. I'm tired. I don't want to be judged over this, but I'm not going to edit this out anyway. They've got 10,000 people using the eyelet pump. Again. This is a press release. So grain of salt, because I don't usually think companies say things like that are bad about themselves in press releases. But I don't see anything bad here. I just see an announcement. Pretty quickly, they got 10,000 people on. I let I think that's a pretty hell interesting milestone. Beta bionics, a commercially staged medical technology company, proudly announced that 10,000 patient start on the islet bionic pancreas. Significant milestone marks, a major step. Up towards the company's mission to alleviate blah, blah, blah. I let in case you don't know, and this is from the the the writing here, but I think it's important to say the first FDA cleared autonomous closed loop insulin delivery device designed to be both easier and prescribed for health care professionals, etc, for prescribers and for patients. So if you don't know anything about eyelet, I have a couple of episodes about it. It is a pump that you just tell it, it's breakfast and I'm having a meal. That is, I think I forget. There's three distinctions, smaller than usual average, or larger than usual, or it's lunch, and that you know, smaller average, larger. Episode 934, and episode 1217, so far is I let content, and we have more coming. We have some islet users on the recording schedule. So anyway, congratulations to beta bionics rate in 10,000 that's pretty awesome. I

want to thank the ever since CGM for sponsoring this episode of The juicebox podcast and invite you to go to ever since, cgm.com/juicebox to learn more about this terrific device, you can head over now and just absorb everything that the website has to offer. And that way you'll know if ever since, okay, well, here we are at the end of the episode. You're still with me. Thank you. I really do appreciate that. What else could you do for me? Uh, why don't you tell a friend about the show or leave a five star review? Maybe you could make sure you're following or subscribed in your podcast app, go to YouTube and follow me, or Instagram. Tik, Tok. Oh gosh, here's one. Make sure you're following the podcast in the private Facebook group as well as the public Facebook page you don't want to miss. Please do not know about the private group. You have to join the private group as of this recording, it has 51,000 members in it. They're active, talking about diabetes, whatever you need to know. There's a conversation happening in there right now, and I'm there all the time. Tag me. I'll say hi. The episode you just heard was professionally edited by wrong way recording, wrong way recording.com, you.