#1283 The Crack

Sarah is from the England. Her mother has type 1 and her daughter Poppy too and was diagnosed when she was 5.

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Scott Benner 0:00
Hello friends, and welcome back to the juicebox podcast.

Let's see what I've got for you today. Oh, this is Sarah. She's from England. She has a son, Aiden, who's 11, and a daughter named Poppy, who's nine. Poppy has type one diabetes. We're gonna talk about OmniPod five raising children with type one and much more. There was a lot of consternation here about what today's episode would be called, but I chose the one you're seeing in your player right now. So blame me if you don't like it. Please don't forget that nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. Don't forget to save 40% off of your entire order at cozy earth.com All you have to do is use the offer code juicebox at checkout. That's juicebox at checkout to save 40% at cozy earth.com when you place your first order for ag one, with my link, you'll get five free travel packs and a free year supply of vitamin D drink. Ag one.com/juice, box. If you're looking for community around type one diabetes, check out the juicebox podcast, private, Facebook group juicebox podcast, type one diabetes. But everybody is welcome. Type one type two gestational loved ones. It doesn't matter to me, if you're impacted by diabetes and you're looking for support, comfort or community, check out juicebox podcast type one diabetes on Facebook. The episode you're about to listen to was sponsored by touched by type one. Go check them out right now on Facebook, Instagram, and of course, at touched by type one.org check out that Programs tab when you get to the website to see all the great things that they're doing for people living with type one diabetes. Touched by type one.org. This episode of The juicebox podcast is sponsored by hungry root, the easiest way to eat healthy. Hungryroot.com/juice, box. This episode of The juicebox podcast is sponsored by the ever since CGM. And sure all CGM systems use Transcutaneous sensors that are inserted into the skin and last seven to 14 days, but the ever since, sensor is inserted completely under the skin, lasting six months, ever since, cgm.com/juicebox, hi.

Sarah 2:33
My name is Sarah. I'm from the UK, and I have a 11 year old son called Aiden, and a nine year old daughter called Poppy, and she is my type

Scott Benner 2:45
one. Aiden is how old? 1111, and I, for the life of me, think you just told me your daughter's name is puppy, but that can't be, right?

Sarah 2:54
It's Poppy, like the flower got it.

Scott Benner 2:58
I was like, that would be a horrible name for a child. How old is she? She's nine, nine, right? Sarah, how old are you? I am nearly 45 I would have been alright with Navy said 44 I would have, I would have told on you, you're 45 you're married. I know that because of speaking prior to the recording. You have two kids. Poppy is nine. She has type one diabetes. How old was she when she was diagnosed? She was 554, years ago. Okay,

Sarah 3:28
it's actually her diversity today is exactly four years ago today. Did

Scott Benner 3:32
you do that on purpose when you signed up? Yeah,

Sarah 3:33
okay, I did because I knew I wouldn't forget the date. A lot of people do

Scott Benner 3:38
that. I used to think it was a coincidence. Then one day, I was like, you know, they're probably doing this on purpose. And then I stopped being stupid, because I was really like, people would say it over and over again. I'm like, what a coincidence. And I realized

Sarah 3:50
that I had the choice of dates, and I thought, yeah, I've got to do on that day, definitely, Sarah.

Scott Benner 3:55
We're gonna have to get this out of the way right away. And I'm gonna curse for a second, but it'll get bleeped out. Don't worry. You sound like Mary Poppins. Fidel, now, why?

Sarah 4:09
Okay, that's brilliant. Yeah,

Scott Benner 4:12
where are you about? Where are you from that your accents like this. Okay, so

Sarah 4:16
it's a bit I wouldn't even have noticed it's mismatch, but, so I was born and bred in London. Um, so, but not I'm kind of, what we say is half cockney. Some people think I'm cockney, which is the kind I don't know how to describe that.

Scott Benner 4:31
More of the cock the cockney is more Adele, yes, the Cockneys more adult, yeah, 100%

Sarah 4:39
but then some other people think I'm the Queen's English upper portion, upper crust, they would say, but I'm totally not either. I'm I'm a mismatch. Yeah, no, I

Scott Benner 4:50
heard the mix right away. It's really interesting. Also, I had a girlfriend once that said I was half cockney, but I think she was just trying to be mean. What are we gonna do? Did that not translate? Sarah? Did. Don't worry, it'll come to you later. Now, which is what I told that girl, let's get through Oh my, fantastic. I'm gonna tell you at the very end, because it's meaningless and it drops so dead in the water. I was like, Oh, wow. Somehow that didn't translate. That's fantastic. All right, don't worry about that. We'll move forward. There are Americans laughing right now as they're listening. Love it. Here's what we're gonna do. We're gonna find out a little bit about Poppy's diagnosis. So how did you see it? What were the steps that happened? You know? What was that first couple of days like? Well,

Sarah 5:35
typical, but there's a little backstory. So it was Christmas, 2019 and both children we thought were just being the worst, worst behaved children ever, ignorant, ignoring us, not doing what they'd been asked to do, not coming to the table. When we said teas, really all of this just ignoring us. And we were like, What is wrong with both of you? Both of you are being bone idle. Why are you ignoring us? You're being terrible. Christmas holiday. So turns out they both had ear infections at the same time, so couldn't hear us.

Scott Benner 6:11
Seriously, seriously,

Sarah 6:15
we had, literally, for a week or so during this school holidays, been shouting like unreservedly, at these two terribly behaved children. So they were, she was five and he was seven. And we just thought, What is going on here?

Scott Benner 6:34
Were they not in pain? No, no,

Sarah 6:37
anything. But we just thought, because it had gone on for so many days. We were like, there's got to be something wrong. And I think Chris, Chris, he was feeling under the weather or whatever. So we went to, what we have here is a walk in center, so it's an emergency. You can walk in and you get, like, a little ticket, and you wait your turn, and you see someone within a couple of hours. So he was going to check, and it turned out he had a viral infection. So he was feeling what, you know, man flu. We thought it was, but it turned out to be a viral infection. And

Scott Benner 7:07
we said, Well, why you thought it was the man flu? Meaning you thought he was just being lazy.

Sarah 7:14
Oh, that's a common term over here. Yeah. We call it whenever a guy is like, Oh, I feel like I've got a bit of a cold and, oh, I need to be wrapped up in a blanket. It's like, yeah, that's man Flo there's nothing wrong with you. Just go for it. You

Scott Benner 7:27
think boys do that to get a little time off, a little bit? Yeah, I haven't done that. Should I try that? Like, just walk downstairs and go, like, I can't today and sit on the sofa.

Sarah 7:37
Some women will give you some sympathy. Majority of women probably Kelly might not give you. That's the one I picked. No, I don't think she might be wise to it, but this many years, but you've already confessed you don't get ill. So yeah,

Scott Benner 7:50
it's true. I really don't get sick very often, so it would be hard for me to and when I do, I get sick very quickly, and it's over. Also, like, I make this announcement, go to bed, wake up in the morning, and it's gone. So yeah, all right, so he's, everybody's sick. You're yelling at the gear. You're having conversations where you're like, hey, we wrote We raised terrible children. Look at them. Yeah,

Sarah 8:09
yeah. It's funny, okay, definitely, totally questioning our parenting. Just thought it was all going down the pan. So yeah, they said, Can you just have a look at the children, because they have, you know, whatever. And they said, Yep, they both got ear infections, so it gave them antibiotics, sent us away. We felt terrible. Then they went back to school. Aiden recovered his ear infection. Went totally fine. Poppy seemed to carry on. So when she went back to school, they said, Oh, she's having real trouble hearing us at school. We've like trying to, you know, do a little bit of sign language with her, and all this to trying to communicate. She can't hear the teacher. All this, it all kind of happened at once. Then she started getting picked on by some older girls at school. So she started getting bullied, which we did sort out. So since she was anxious about that, so

Scott Benner 8:58
then she started

Sarah 9:00
drinking and obviously urinating loads, and then it just it all happened straight away. So we went back to the doctor. We actually saw a GP, so our general practitioner six times, and every time even I said, my mum is type one, but at that point I didn't know the difference. So I said, my mum has got diabetes, and my dad had diabetes before he died. He was type two, right? I said to them, could this be diabetes? Obviously, just totally didn't know which type just could this be? And they were like, Nope, definitely not. That's not on my radar. It'll be, we'll check her for a urine infection. So checked her, gave us some antibiotics because she was sore, because she was going to the toilet all the time. So they were like, oh yeah. Well, it look, you know, down there. Looks tender, whatever. So I went back every single week, without fail, for six weeks in a row, saying she's not getting better. It was terrible. She was up throughout the night, drinking throughout the night, going to. At the toilet school was saying she's drinking three and four bottles of water a day, right? All of that, so at one point, so the final appointment that we went back and they said, No, we don't know what it is. What we'll need to do is we'll need to send her for blood tests to check her kidneys and something else. And the waiting list for those blood tests will be three weeks.

Scott Benner 10:21
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Sarah 12:35
seems to be they, they didn't in any way. So they, all they were doing was they checked her. She gave five urine samples. They never once checked the checked it for sugar. They just checked it for infections, which I just find bizarre, and they didn't bring a finger. And they just thought when, when I said, would this be diabetes? They just looked at her, and obviously she was a slight, tiny little thing, and thought, No, this obviously, was you thinking type two? So at that point, after six weeks, I was like, I cannot. I can't let this go. I can't wait another three weeks for blood tests. So I ran my mum. So my mum lives like a mile away, and I said, Can you bring your blood testing kit around? I can't. Something is nagging me. I can't let this go. I can't wait three weeks. I need to test her blood sugar, yeah. And so my mum was poorly at that time. She was like in her 80s anyway. So my sister, who lived with her, brought it round. So she brought her clinic, but tested it and again it had that high, which obviously so high that it can't read a number, yeah. So then just obviously I knew, I phoned our emergency care, 111, they said, go straight to A and E, which is accident and emergency, which is your emergency room. Just go there straight away. So I rang my husband. So my husband's a police officer. He works, so we're in the Midlands. He works in Birmingham, which is about an hour, 45 minutes to an hour's drive away. So I rang him and said, This is the crack we've she's got diabetes. We are going to an E right now get home. So he drove straight home. We went because I don't drive. So we waited for him to come home. He stayed with Aiden. No, he didn't. My sister stayed with Aiden, and we took her to the hospital. And yeah, within 15

Scott Benner 14:19
minutes, Sarah, you don't drive because you're a fancy lady, or because you don't have two cars. Or why exactly? Oh, I

Sarah 14:25
wish. Oh, okay, so there's another element in the story. I don't drive because I'm visually impaired.

Scott Benner 14:31
Okay, I didn't know that. It just seems strange in this day and age that you don't drive. That's all,

Sarah 14:36
yeah, yeah, yeah. I would love to be able to drive. But no, it's not on the cards.

Scott Benner 14:40
Also, I might call this episode the crack. You said that a minute ago. Do you know that I did say that? Yeah, I don't know. I assumed it meant, like, here's the skinny. This is what's going on, or something like that. So it means that's the this is the deal. Yeah, here's the situation, here's the situation. That's the crack. Oh. I don't know why, but I love it. And you said it. I was like, Oh, I'm gonna call the episode unless you say some other British thing, which you very well could.

Sarah 15:09
Okay, I'm sure I've got plenty. So

Scott Benner 15:12
we've got your husband coming from across town. I like that. You try to get your 80 year old mom to come over with a meter. She was like, I'm old. No, yeah. And so don't, you can't wait to be like. Just not wait to be so old that when somebody says something to you, you go, no, no, I won't be doing that. She

Sarah 15:31
actually said that. She probably didn't. I don't remember. I was too polite.

Scott Benner 15:35
I just, I can't wait to be old like that. You don't even just like, I'm like, I don't care what you think. But um, but okay. So got the meter find the blood sugar high, which, in the meters we have here is like over 500 actually

Sarah 15:47
have it. So it was, so when she was at the hospital, it was 576 Yeah. Okay, so, so 32 UK, wow.

Scott Benner 15:55
Now we do We? Are we waiting for our husband to get back to pick us up, or do we just find a different way to go? I'm trying to figure out, does he take that long drive to meet you at the so

Sarah 16:06
they said, Go to accident emergency. Now I rang him and said, Do you want me to wait? And he was already in the car, so he was home with he obviously broke the speed No, he didn't break the speed limit.

Scott Benner 16:18
That wouldn't happen. There weren't lights and sirens and driving very quickly. No, no,

Sarah 16:23
no, he did. He couldn't have taken a siren home with him. No, but he was probably home within half an hour. So we thought, they didn't say, I mean, I don't know, in hindsight, maybe I should have just gone on my own, but I didn't. I waited for him and we went together.

Scott Benner 16:35
No, of course, did they call them Bobby's where you are? Where's the economy? Yeah. Well, he's a Hang on. Let me think he's a police

Sarah 16:46
officer. He bobbies. Yeah, Bobby on the beat, yeah. I suppose they would. They would refer to them as that. Yes,

Scott Benner 16:51
that's all. I want to know. If my television watching is accurate or not. That's all, yes. Okay, yes. Alright. We get to the what did you call the emergency room. What do they call

Sarah 17:02
it? A na accident and emergency? Okay,

Scott Benner 17:04
you get there, Are you pissed the whole time that you've been trying to tell a doctor this for weeks? Or do you does that go

Unknown Speaker 17:12
out of your head? So it

Sarah 17:14
was just so it was so traumatic. So they they couldn't even, what were they doing? They were doing their toes. I don't know what they were doing. They couldn't get blood out of wherever they were trying to get it. So they end up doing her toes. And it was just all

Scott Benner 17:28
a horrible situation. But,

Sarah 17:32
yeah, no, they just only diagnosed her. They got her on a ward as soon as possible. I so at this point, obviously I know they're like, it's type one, it's insulin forever. I'm like, All right, okay, that's my mum is then. So I then clicked, my mum is type one. My dad was type two. I think he got type two in his 60s. But then and he managed to last that. He said, he said, his words last 20 years on diet and exercise before he then had to use insulin. So when he passed, he was on insulin as well, but I didn't know which. I knew they were different types. They both had different types, but I didn't know which, all right, obviously. And so this is a

Scott Benner 18:10
bit fascinating, Sarah. So we're going to take a left turn for a second. Your mom was how old when she was diagnosed

in her 30s? Ah, okay. But

How old were you then zero, right? So you were so so your entire life. Your mom's had type one diabetes.

Sarah 18:25
Yeah, yeah. She was diagnosed in her 30s after her third child. I was her fourth child, 42 Hold on

Scott Benner 18:38
a second. Your mom was a player.

Sarah 18:40
She had. She spent her whole life having kids. I think so. Do you want the story? God damn right. I do. Go ahead. Okay, so she got married at 17, okay, to my dad, who was, at that point, 26

Scott Benner 18:55
Oh, okay.

Sarah 18:56
I know, to me controversial, but in those those days, so hang on. Let me think, oh, do I know the year? So hang on. She would now be, she passed when she was 84 which was three years ago, 87

Scott Benner 19:11
so she would be 87

Sarah 19:14
she got married 75

Scott Benner 19:15
years ago. So, like it was the it was 1950 maybe, yeah, yeah, about well, so he, he had a job, so he was a good choice.

Unknown Speaker 19:25
He'd just come back from

Sarah 19:26
the army, okay? And he was a family friend of her mum and dad's, so they, like, loved him and all that. So the fact that he was 23 and she was at 17 wasn't

Scott Benner 19:35
wait 23 or 26 No, hang on, 23

Sarah 19:39
he was six years older than her. He was 23 she was 717. Did I get it

Scott Benner 19:43
wrong? You said 26 the first time, but that's 23 you know, it's funny. It's not any better. If a 23 year old came after my 17 year old daughter, he'd leave here with a stick on the side of his head. So, yeah, but okay, absolutely. 1950 they they get married, they make a baby, right? Away, yep, since

Sarah 20:01
she had my brother when she was 18. Okay, so they got married in the January, he was born 13 months later in the February. I

Scott Benner 20:10
hear what you're saying

Sarah 20:13
right away. Cracks on. Yeah.

Scott Benner 20:14
Wait, what was that? What was that saying? They cracks on. I don't know what the you're talking about. Doesn't matter. Okay, so did you hear that thing I did with that kid, the British kid, like a year ago,

Sarah 20:29
I have listened to every single episode. Oh, within 18 months,

Scott Benner 20:34
his accent was so thick that I was proud of myself when I understood what he was saying. Do you remember him?

Sarah 20:40
Oh, because there's only been so I've listened to all of them, obviously, but there's only been about 10 British that

Scott Benner 20:45
I think of he was on a reality TV show. Oh, yeah,

Sarah 20:49
I know him. Yes, I know him. And I went and googled him afterwards and found out who he was.

Scott Benner 20:53
Yeah, handsome boy. Am I wrong? A boy? He's a handsome boy. I

Sarah 20:57
said, well, too young for me. Well,

Scott Benner 21:00
I didn't say, well, not well, not too young for your dad, but go ahead. Okay. Now, so, so your mom and dad are knocking out kids. Tell me how many they had, and you were the Go ahead,

Sarah 21:11
four. So she waited 10 years, then after that. So I think they learned their lesson, having had one so quickly they thought, yeah, I think we should chill out now that was

Scott Benner 21:23
expensive and painful. Yeah, definitely okay. So she took a 10 year break and had another one at 2728 Yes, yeah, 27 and 30.

Sarah 21:36
So she had two close together. So I had two sisters. Have two sisters. So she had one at 27 one at 30 and then within a couple of years of her, of my second sister, she got type one. Okay, so that would have been in so my sister was born in 69 so early 70s, she was diagnosed, right?

Scott Benner 21:58
So there you go. So your mom, because that's the first thing I thought was like, was she, you know, she wasn't cranking out kids with type one, so she gets type one after her third that, am I guessing that slowed her down, but then she wanted to try one more time for a baby. Or did she get pregnant with you by mistake? I was sorry. I was conceived in

Sarah 22:20
by accident when my sister was, she says, dying in hospital with meningitis.

Unknown Speaker 22:26
Oh,

Scott Benner 22:27
they're just trying to get get rid of a little stress. Maybe

Sarah 22:31
it's not true. So, yeah, my sister got meningitis when she was 12, and was in hospital, critical. And they were, you know, she was in hospital for ages, and her my mom came in and told her the funny story my sister retells it so well, but she came in and said, Oh, guess what? You know, we thought I was going through the menopause, but no, looks like I'm pregnant. And her response was, you're already lining up my replacement. What is going on? I haven't even died yet. She she didn't. She recovered. Obviously, she recovered. She's fine.

Scott Benner 23:04
Sounds to me like your dad was like, I am feeling very stressed about this kid in the hospital. Yeah, you know what would help mother so and you can't get pregnant. You're so old, but then boom, here you come. Okay, I guess, nice, jeez. Okay, your visual impairment your whole life. Or,

Sarah 23:22
yeah, Googling it, I have thought that maybe it there. It has, has something to do with type one back then, as a mum having type one and visual impairments on the children. But it's never been as cut and dried as that. They've never really said that. It's just speculation. I

Scott Benner 23:40
mean, so this is really interesting, because your mom lives a long life with type one. She lives 50 some years with it, yeah, but you're unaware of her management in my mind, like, because it's not, it's not front of mind for you. So, like, did you not see her taking care of herself? That is the whole reason I asked about this, yeah. So she

Sarah 24:02
was, I think, in my mind that now, having known, obviously living with poppy for four years now, and knowing all the stuff, she must have been on a constant roller coaster. She must have been because the management that I saw, or that I remember she she was told many years and years ago, she was told she was brittle, which, again, I think, was them giving up on her to a certain extent. Yeah, would, when my dad was around, he would very much take, not ownership, but he helped her out immensely. I know that. I know he would. He would always be like, you know, oh, that's a fistful of a potato and this kind of thing, he would know, oh, that's one unit, that's two units, that's three years he would look at a plate, and he would do very much like you it wouldn't be how many grams of carbs, it would be, how many units of insulin is it, right? And he majority of the time when he was there, he would do it. He would do it for her and tell her how much to dose. I did have a handle on it, but many times so in when I was growing up, I would come home to and find her unconscious. As a child, it never, kind of, I don't think if it affected me and scarred me or that kind of thing. It just was like part of life, like, oh, mom's low again. I need, oh, she's had a Hypo.

Speaker 1 25:17
So we all grew up with it

Sarah 25:21
as part of life, not as a big normally, she would handle it, but sometimes I would have to call the ambulance when I got home from school. So that sounds terrible, but it didn't seem like a big, massive thing, but it was obviously, yeah,

Scott Benner 25:36
it just didn't ring out that way. So I mean, 56, eight, it's in the 80s. I'm trying to so you're when are you born? Give me the year you're born.

Sarah 25:45
7979

Scott Benner 25:48
so she's like

regular NPH, or maybe beef and pork insulin for a little while mixed in there. Yeah, yeah. She did have beef and pork, yeah, and then. So she's just shooting once a day, twice a day, as it goes on for that decade. And yeah, and probably just doing some food exchange, kind of an idea, or that kind of a thing, okay, yeah, and your dad knows more about it than she does. Was she an unstable lady? Did her personality jump around?

Sarah 26:18
I would say she did have bouts of depression, but never diagnosed and never treated. I think she would get herself real, really anxious about certain things, like she'd she'd have shingles a few times, and be super worried and super anxious about things, but we just kind of went through it and just carried on. Okay, I don't know if it was, it was like, like you said, was she altered because her sugar levels were high for such a long period of time? Yeah,

Scott Benner 26:47
was she? Was she angry? Short tempered, foggy, then goofy? You know what? I mean, like, did that bounce around like that? Or maybe not. Maybe those slower insulins didn't give you as much of us. Maybe the swing was more in the number not, I don't know. I'm guessing you know older people with diabetes. But okay, so, so you don't really see it a lot growing up. It's not even a thing you think about. Like, if I would have said to you prior to Poppy, if I would have said to you, hey, tell me five things about your mom. You don't you wouldn't say she had diabetes, right?

Sarah 27:18
Probably not. Yeah, well, probably not. I mean, she did move on with it in and in years to come. She did move on with obviously, faster acting. And she did get a libre so she was checking less, but the way, well, as soon as I was like in the know, not in the know, but as soon as I knew more, I felt like she was not getting decent care at all. I do think that they had, she was a lady, so she lived at 84 Yeah, I think and poppy got diagnosed a year before. So I think they had thought very over the past, however, so since my dad, probably the last five to eight years, they had thought, Do you know what? She's a lady in her 80s. She's not doing a good job, but just let her be. Let

Scott Benner 28:04
her Sarah, 84 if I make it to 84 I'm calling it a I'm calling it a good day. I'm believing. You know what I mean. Don't you think that?

Sarah 28:12
Yeah, yeah, I know, but I know her health was seriously damaged and seriously affected. Yeah, had it not been, well, God, she might have made it to 94

Scott Benner 28:23
Yeah. I mean, she had the if her body had the fortitude to get to 84 in bad shape, you're right, she might have gone farther. Yeah. I mean, it's very interesting, because obviously it's not you know what you would call modern care. She didn't experience any of that. Do you even know about her side effects? Do you know what she was living with, as far as troubles, yeah, what did she have going on?

Sarah 28:42
It didn't really all the side effects generally tend. She seemed to be absolutely fine. She was fit as a fiddle, we say. And she was always 10 years younger than what she actually was. She looked absolutely fantastic, amazing, really fit and healthy until my dad died. So at that point she would have been, hang on. So he was 82 she was six years younger, so she would be 76 Okay, so she had so 70 up until 76 maybe a year after she was she just looked so young. She looked in her 60s. Everyone commented, oh, your mom looks so young. She's got great skin, this, that and the other. She would walk miles and miles and miles. She wouldn't get the bus to somewhere. She would walk, even if it was a couple of miles, do everything in herself, all of that, all that she just was a young 76 Yeah. But then it started to all hit her. So she had neuropathy, definitely in her feet, that was for a while, so she would have to be really careful. She could step on a nail or anything and not even notice until she saw blood gushing out. No feeling in her feet. Her hands were really, really badly arthritic, but she was also she lost feeling in her fingers, and I think probably for best part of 4550 years of fingerprint. With kin,

Scott Benner 30:00
maybe neuropathy. Do just yeah,

Sarah 30:02
all the feelings just gone, yeah. But then she started having so her kidneys. She definitely had kidney problems again. I don't know the exact diagnosis they she wasn't on dialysis. She wasn't on dialysis, yeah, okay, no. They were saying she has got kidney failure, she has got kidney disease. She's got heart problems, heart disease, etc, etc, so she did have all of that. But then that same Christmas, when we accuse the kids of not listening, obviously they had ear infections, she was also diagnosed with Alzheimer's and vascular dementia at the same time, really. So that was, that was the slow decline. I think that was, that was the beginning of the end. Yeah,

Scott Benner 30:45
they also, they call Alzheimer's, uh, diabetes type something,

Sarah 30:49
yeah, I've heard that, yeah, yeah. Okay, so

Scott Benner 30:54
that's her. That's your understanding of her. Poppy's diagnosed. Do you at some point think, oh my gosh, my mom's life is my daughter's life now. Or do you see that it's different when they start teaching you about the management and think maybe this will be different

Sarah 31:11
for her? No, yeah, I didn't see it the same because I thought as soon as they started educating me, I just thought, or I started to educate myself. I thought, this is not the same. This doesn't have to be the same. She doesn't have to have all these problems, because we don't manage it even from day one, my mom in that first year that there's only one year where they were both a lot, well, my mum was alive and obviously, and then it covid Hit. So we couldn't meet up with her very often, but she would wake up. My sister would tell me she if mom wakes up in the morning and she's high, she just doesn't have breakfast, and she'll wait till for hours until she comes down. And I'm like, what? Why doesn't she just have a correction dose? What didn't make any sense to me. And then again, I'd meet her up. We met at the park so she could have a little walk round, and the kids could play on the swings, whatever. And I said, what's going on? Or how are you? Oh, I need to walk around for a few hours because I'm quite high. I'll just walk it off. I was like, Do you not want to take a correction dose, though? And she's like, No, I'll just walk you know, I won't have tea until I come down. It doesn't make any sense to me. Yeah. From Yeah, and I was only like, you know, a couple of months into it, I was thinking,

Scott Benner 32:25
that's not what you should be doing. Were you able to feel any like responsibility to your mom or guilt about her life? Or were you so overwhelmed with poppy that you kind of couldn't think about other

Sarah 32:38
people? I do feel that if I had somehow been more involved or known more that maybe I could have helped her, but I wasn't involved. I didn't know and my sister was her carer. And it turns out, my sister knew absolutely nothing about diabetes at all, and didn't take it upon herself to learn.

Scott Benner 32:56
I don't know how to figure that out, like it's I don't when a doctor or tells you this is how it works. I think most people just believe that. And why would they not? You know what I mean? Like, why would a doctor give you some of the information about your daily disease? You know what I mean? Like, it doesn't make sense. Like, why would you even wonder, did they tell me everything? Yeah, but I mean, I take your point. She's living, she's doing okay. And probably people told her, Oh, you have neuropathy in your feet because you've had diabetes for so long. We expect that. Yeah, you know,

Sarah 33:28
all of the, all of the things they're all said, it's because you've had diabetes for so long. This is why you've got X, Y and Z, yeah,

Scott Benner 33:34
oh yeah, absolutely. And nobody said X, Y and Z for a while on here. So that was good. Good job. Okay, how do you teach yourself about diabetes for Poppy, okay,

Sarah 33:46
so the first let's think the first six months, we were very much drip fed from the hospital, from the diabetes team that we have there. So you have a group of nurses, you have a consultant that you see. Maybe you see the consultant once every three months. But in the early diagnosis, you get weekly, they're doing obviously, it was all covid. So Poppy got diagnosed on the seventh of March, 2020, she was in hospital for three three days. We got sent home. We went into the hospital, had a meeting, they did all the education, all that kind of stuff. And then the 20th of March, everything shut down. So then, from then, they didn't see us again for six months, nine months, it was all remote. So it was phone calls and emails.

Scott Benner 34:31
Was that helpful at all? Like, did you feel yourself understanding getting better moving forward, or was it just the thing they were doing?

Sarah 34:38
No. So, because I had six months with poppy 24/7, I feel like I did get a handle on it, because I watched her every single day for six months like you with Arden when she was diagnosed, you just stare at her. Thought, what is happening inside? Said they were quite helpful. I do have to say, Yeah, they did give they were really checking in. So, like, the first month, they said something like, she can have no snacks in between meals, because we want to work out the ratios, which was really hard, so she could have carb free snacks. So okay, which is why she now hates cucumber, because for a month, she had to eat nothing but cucumber and cheese and whatever they said was low carbs, carb free snacks in between meals. But a five year old, she now doesn't like any of those things, but yeah, that's how they worked out carb ratios. But then I think within, I don't know how long they would do checks so, you know again, if her so they were, she was on lances and Nova rapid injections, if she was, like, going low in the evenings, or that, they would change all the how much collage in the background. They would do it, and they would check in, try this, and we'll give you a call in a week's time. They were doing what they said, they would check in with me. But at some point, I don't know when, but at some point I was like, You know what this is? I can't be listening to them anymore. I need to do this myself. I don't know when it was, but at some point I just thought they're only tweaking it by this little amount, and then it's see what happens for a few days. Well, why do I need them to okay it? I can do that. I can tweak it a little bit and see what happens in a few days. And then if it doesn't work,

Scott Benner 36:21
I'll put it back. Yeah? I mean, feels like common sense, right? Yeah, so

Sarah 36:26
very I'm gonna say maybe a year. I don't know if it was a year, but then she's had, like you said, you have to be your own advocate. We've had to fight for everything that she's ever got, as much as, I think people say everything's free here, as much as it's funded by the National Health Service, it's not just given to everyone on a plate. 100% not. And we've had to dig our heels in many times to get what we needed to get for Poppy, so

Scott Benner 36:57
Sarah, it's free if you can get it. Yeah, yeah, gotcha. Like, if you can get yourself to it, get your hands on it, get somebody to agree to hand it to you, then it doesn't cost anything. But it's not just like you don't wish out into the air and it just arrives. No,

Sarah 37:10
absolutely not. And it does seem to be like we refer to things as a post code lottery here. So depending on what area of the country you are, can very much dictate what you are offered, yeah, and whether you will get it or not. Just

Unknown Speaker 37:25
yeah,

Scott Benner 37:27
I was interviewing this girl the other day from America, she's a nursing student, and she said, Oh, she was talking about something that they teach in school. And she said, Well, it depends on, you know, what part of the country you're in. I'm like, why is nursing school depending on what part of the country you're in. Like, aren't there basic ideas that they all need to know, whether you live in Minnesota or Florida? You don't even mean, I was like, that doesn't make any sense to me. But then you're you say this, like, post cold, what you call it post code lottery. And if you talk to people in Canada, they'll tell you that their diabetes care vacillates wildly depending on the province you live in. Yeah, yeah. Where some places they'll put you on regular and mph in 2024 that's insane. Yeah? So, or you go to another province and they're like, no, here's a CGM and a pump and let's get going. It's really interesting. I've been, um, I'm gonna have to stop doing these cold wind episodes a little bit. I'm gonna need a break for myself, because I'm getting a little cynical listening to them. You know what I mean? I'm like, oh, say that, yeah. So everybody's just not trying. Got it great, except the ones who are up until they burn out and they stop too, like, yeah, all right, great, you know, I'm sorry. So you're making it. You're making it through this process. You're teaching yourself on your own, using the internet, using, I mean, you can't, you can't use your mom. You can't use your sister. Did you try? Did you call your sister and then you were like, oh, hell, she doesn't know anything. It's

Sarah 38:55
a very sore subject, to be fair. But she was trying to do the bare minimum that she could for to with my mom's care. She didn't want to get involved. She didn't want so my mom was with her arthritis were getting worse. She was fighting it harder and harder to do the injections herself. Yeah, my sister didn't

want to do it. And I said, What do you mean? She's like, well, I don't feel comfortable doing it. I

thought, I don't feel comfortable giving my five year old an injection, but you just do it. Hey,

Scott Benner 39:19
I've been married for 27 years. I haven't been comfortable. Once I you don't hear me complaining. I just get up every morning. I go, okay, and I go, yeah.

Sarah 39:29
So she was reluctant to take on any responsibility, she said, so they so she requested that a nurse would come in to give my mom a couple of injections a day. So they tried to put her on like NOVA mix. Do you know that? Do you have that in states, which is half long acting and half fast acting mixed into one? So she could have two shots a day? Okay, so they tried her on that so that then a nurse could come in twice a day to do it, because my sister was refusing to do it. But then that had her numbers just went all over the shot. But it was a total disaster. So there to go back to slow, slow acting and fast acting. And she was starting to come around to the idea of, I'm going to have to eventually do it, because mom can't do it herself. I was like, if it wasn't covid, I'd be around it. I'd be coming around and doing it myself. It's not but no, anyway, she

Scott Benner 40:16
Yeah, I hear you. I hear the frustration. I understand. I don't want to ask more questions, because it's your sister, but I but I get the I think I get what's happening. I'm trying to get you to something that you brought up before we started speaking, that you want to talk about. This all falls on you. Your Poppy scare. Is that right? Yeah, you're the one that takes care of it, and generally, generally speaking, your husband understands it. Or no, yeah,

Sarah 40:43
yeah. So obviously, the first six months, it was me. He was, obviously, he's a police officer, so he was front line. So he was still working 6070, hours a week during the whole of whole of it. So us, the three of us, were at home, so me and the two kids. So for that six months, I was very much doing all of it. He was involved. So when he was home, he would do the injections, but I would obviously be cooking the tea, I would be carb counting, I would be doing all of that kind of ratio stuff. And then when we started doing it ourselves, so not asking the hospitals for approval to make changes, it did fall to me now, I think because he always says, Oh, you're a maths guru. You're a maths person, da, da, da, and all that that he he won't understand it. He will understand it. He just hasn't, because I do it. Has

Scott Benner 41:31
he ever told you you're better at doing the dishes than I am? I would do them, but you're so good at it. So I'm gonna try that on. My wife. Is what I was, I was just wondering if that works or not. It's like, you know, vacuuming, you just, you have, there's a certain way you do it that I think really makes it better. You get in there. So, okay, so he, do you think that's him feeling like, Oh, God, I don't want to make a mistake. So I've asked

Sarah 42:01
him about this. So with all this, so when I started learning reading within a couple of months of diagnosis, she got the libre because I'd read that she needed something. Now they wouldn't give out dexcoms Because they only gave out dexcoms At that point to kids who were hyper unaware. Now she had did have some hyper awareness from the start, or people who had had really severe hyperglycemic episodes or something like that. So she didn't tick any of the boxes for Dexcom. So this is why they gave her the libre, which, again, is the NHS way of like the poor man's,

Scott Benner 42:37
whatever it's called. They were saying. Yeah, that's what

Sarah 42:41
they were saying back. Then it's a cheap version. We'll give the cheap version. So we had that. We did have that for let me think, let me think a two years until, in a weird way, thankfully, but also not thankfully, Poppy lost her hyper awareness. Now, I think in my mind, it was because she was roller coasting. She was having highs and lows because we couldn't rein in the the libre did not work for her. It was really bad. We went through this time where it was it had such a big lapse. If she was dropping, it would have a massive delay, so we'd have to put her low alarm at something crazy, like 100 so 5.7 it's 5.7 100

Scott Benner 43:21
you want me to look

Sarah 43:23
five, not fives 90, so definitely over 90. But yeah, her, her high alarm was like 5.7 because by the time it went off at 5.7 she was already below 75.7. Is 103

There we go. So yeah, so

if her low alarm went off at 5.7103 we would finger prick, and she would already be three point something. So in the in the 60s, so we it just wasn't working with her. She wouldn't feel it. We told the hospital this, thankfully, and they approved the Dexcom for her. And then, since we got the Dexcom, her hyper awareness has gradually come back, and I think it's because we're she's more stable now. She's got loads of stability since we found the podcast. What? As soon as she got the Dexcom, her a one, Steve said I had coming down, so it was like 6.86 point 6.6 6.5 6.3 as soon as we found the podcast, within three months, it's been in the fives, and it's been in the five for 18 months. Oh, that's wonderful. 5.3 5.4 5.5 it doesn't go above there.

Scott Benner 44:25
That's amazing. Good for you. It

Sarah 44:27
is amazing. Congratulations.

Scott Benner 44:28
Good for you. Thank

Sarah 44:30
you. Thank you so much. You're very

Scott Benner 44:31
welcome. It's but again, not I haven't said it to you. I shouldn't have said again, but I should have said that I try really hard in these moments to do two things. First thing is, is going to sound strange, but I like to separate myself from the podcast, because it's unhealthy for me to feel like I helped all these people. Do you know what I

Sarah 44:51
mean? But, but you are the creator of the information. That's fine.

Scott Benner 44:55
The podcast helped you. It makes me more comfortable if we talk about like that, okay. But the other thing is. I just said the stuff out loud, you did all of the hard work, all the staring, all of the experiencing, thinking about it, going back again. Like, I just sort of, like, I don't know, I just shoved you through a door, and I was like, if you keep walking in this direction, this is going to work out. And you you just, you did it, you know. So, yeah, I appreciate it very much. I'm not trying to be it's such a weird position for me to be in, I know and I and I appreciate it and thank you. I know I did this, but it's weird to say, it's weird to say out loud. It just feels I feel like a dick if I say I don't know, I just do all these years later, it feels weird to have somebody thank you for their health. You know what? I mean, you might not know it's a just an odd situation I'm in. I guess I'm never gonna know why I feel that way, like there's part of me that thinks because I didn't help my friend Mike, I don't want to feel like I helped other people. That's one of the things that bothers me a lot. And I think the other thing is that Arden is a work in progress, as she will be her whole life. I'm not superstitious, but I don't want to take credit for the thing until I know if it worked the whole time, because it would be strange if I was like, Oh yeah, I know what I'm doing. I'm so good at this, etc, however. And then, you know, Arden wakes up 10 years from now and has problems. You don't even mean like, I don't know like, it's just, I don't know how to explain this part. You can do the best that you possibly can, and it's about it's weird, because you could ask me almost any other question, and I'd go on for 15 minutes and talk my head off and be completely clear minded about it. But why can't you take a compliment about the podcast? I don't know. I can do it in writing, like I can do it online and like on Facebook. If somebody's like, Oh, my God, the podcast helped me so much. Blah, blah, I can say, Oh, I'm so happy for you. That's great. I appreciate my pleasure. Like, I'm easy, but when, when I can hear the person's voice, I curl up a little bit. I don't know why exactly. So anyway, I appreciate it. I'm so happy for you and for her, and I don't know why it makes me uncomfortable. Maybe if I make the podcast for 10 more years, I'll figure it. Maybe I should just ask Erica, oh, why don't we just do that? Yep, she'll go, I'm not your therapist, but it's okay. We can still talk about it, because I feel like an asshole right now. Like, like, I really do. Like, I just, I'm like, why couldn't I just say thank you and move on?

You know what I mean? So I don't know, Terry, you didn't want to

Sarah 47:34
fall a lot of a lot of people have that though. It's like, when someone pays you a compliment, loads lots of people that bat it away. It's like, you need to just accept it. Someone say, Oh, you look amazing today. And go, oh, this scruffy thing, this old thing I've just thrown off. It's like, no, just go, thank you.

Scott Benner 47:52
I accept your example. Except I'm not like that in any other aspect of my life. The the other day, I bumped into my doctor, who's like, literally bumped into her, and she's the one who helped me get on the GLP medication, which I've almost been on for exactly a year. I'm 45 pounds lighter today than I was a year ago. Wow. And she saw me, and she goes, Oh, my God, you look so much younger. And I was like, Yes, I do. And then I said it to anybody all day long, who would stand in front of me. There was six weeks where I referred to myself as skinny Scott, and I would say things like, skinny Scott likes fashion, so, so I have no trouble accepting a compliment. In my mind, I didn't do this like I took the GLP and I lost weight. So, yeah, I don't know there's something also

Sarah 48:40
made a conscious effort with thinking about what food was entering your body. I have

Scott Benner 48:45
been doing. I have absolutely been doing that, and I'll take credit for that. I can't take credit for the podcast. It makes me feel weird, and by the way, like I can step out of it and tell you, like, academically, I know what I did. I know I made a thing that's bigger than anything else has ever been, that's reached more people, that's helping more people, that's more accessible and digestible. I know it's academically. I understand the whole thing. I can talk about the podcast like it's not me. I can't talk about me like I'm the podcast. I'm gonna find out why. I'll go to therapy. All right, okay, let's get past this, because nobody gives a what happened to me when I was nine and why I can't take a goddamn compliment about a podcast. So people are like,

Sarah 49:29
Okay, let me tell let me tell you something, which I think adds to our challenges that we've had over the years.

Scott Benner 49:39
You did touch on it earlier. I'm ready. Oh, sorry, no, I thought, I thought you paused like you were waiting for me to say something. Oh, my God, tell

Sarah 49:48
me so I said that I have a visual impairment, right? So this, this actually threw a spanner in the works with Poppy's

Speaker 1 49:55
stuff. So after. Six months, they

Sarah 50:00
suggested to us that she would go on the waiting list again. It's not just handed out the waiting list to get a pump. So we were like, yeah, yeah. 100% put that. Put her down for that, no problem. And they said it would take a year or

Scott Benner 50:14
whatever. I don't know were they making it by him exactly?

Sarah 50:18
I don't know that. I don't know how they justify whatever this waiting list was, but it was going to be a long waiting game. Okay, so when they so we said yes to that. Meanwhile, Poppy was this, I don't know, really sensitive to injections. She was fine having them. We would do them. We weren't chasing her around the house too much. It was fine. She would give in to injections, however, many times, but she would bruise every single time that we did it. And we were like, Is it her? Is it us? Like, you know, they, they say, like, hold, like, keep the needle. Like, totally still hold it in for 10 seconds. We were doing that, and it's still a massive bruise. I'm like, is she moving? She's five. She does fidget a little bit. What is going on anyway, doesn't it didn't matter what we did. She was always bruised with every single injection, so she just looked like a little bruised

Scott Benner 51:08
pin cushion, like you're a flicker.

Sarah 51:11
So we heard about this thing called at the eye port, which I think you got someone else. A few people have mentioned, yeah, is it Medtronic? It's Medtronic.

Scott Benner 51:18
Medtronic makes the I port. I'll say this out loud for Medtronic, because they're sponsors. Now, again, I don't think it makes any money. I don't think there's any business behind but it's such a great thing. I wish they would talk about it more. You know, it

Sarah 51:31
really was good. So we looked at it. We requested it from a hospital. They said, No. They said, We will not pay for that because you're on the waiting list for a pump. So again, hang on, but she's still bruising from injections right now,

Scott Benner 51:44
yeah, but a year from now, she won't be when we get it there, yeah,

Sarah 51:48
so they said no, because you're on the waiting list for a pump, you we will not fund an eye port. Okay, fine. So we self funded it. We bought it ourselves, which is fine, and she was on that for however long, until she finally got a pump. It was a god send, because obviously she couldn't feel the injection. It was very similar to a candy like you change it every three days. She's having her injections just literally slotted in into the hole, which I managed to do with magnifiers and glasses and all this stuff. So I could do that anyway. So when we get to the pump situation, they have a choice. So again, our hospital had the choice of

Scott Benner 52:26
Medtronic or

Sarah 52:30
OmniPod. Yeah. So those were the two options. Now they we went to the little meeting. They had them all on the on the table. So she looks at these Poppy looks at these small little cannulas, and then she looks at the to her chunky omnipot, and she goes, I want those. I want those. And I said, right, yeah, hang on. But what you've got to understand is that tiny cannula is attached to a tube, which is then attached to this massive, massive pump. And she was like, Yeah, that's what I want. Like, okay, I had thought she'd go with tubeless. Okay, fine. We'll see. So you get the trial. So they do a saline trial with it. So we took it home. She was like, she was liking it. She was like, Yeah, we like we like this. I want to do this good. Okay, fine. Got it all authorized, got it all funded, etc, etc, bring it home.

Scott Benner 53:20
I can't see to fill it

Sarah 53:23
doesn't doesn't matter what I do. I cannot get the insulin out of the vial. Yes, I can't get, I don't remember how I how it was. So you had to fill the little reservoir. Then you had to prime the tubing, get all the bubbles through the tubing, get the bubbles out of that, whatever it was, I was not able to do it. Couldn't do it. So we then had to get into discussions with them. Could my husband spill it on a day when we weren't using it like before he got to work or did and they were just like, No. They pulled it. They're like, you're not having it. There's no way around it. You're not having it. She'll have to wait another year for a pump.

Scott Benner 53:59
They couldn't just give you a different pump.

Sarah 54:03
So this is, this is what they said. They said, if it's not that one a hand, they didn't even, they didn't even talk to us about the OmniPod. They just said, If you can't see to fill that one, you're not going to be able to see to fill anything else. It's done. Her pump journey is put on hold until she's old enough to do it herself. And I was mortified. I was like, no, no, no, I'm affecting her health. This is, this is all my fault. This is going to be her waiting until, what? Until she's 1011, 12. I couldn't envisage when she was going to be able to do this all herself. But thankfully, we then got a follow up phone call from them, and they said, actually, there's this other pump that we don't, don't actually prescribe here, but we do have a couple of people on it, and it's called the

Scott Benner 54:47
architect, insight, okay,

Sarah 54:51
pump, and it has pre filled cartridges. There you go. So you literally just pop the cartridges in and. And fill the tubing and it's and it's done. Would you like to see that one? Obviously, I was like, Yes, please. She still had to wait another six or eight months. Brett, seriously,

Scott Benner 55:09
what are they doing? Are they bringing them in? Like,

Sarah 55:11
I don't know this, this time delay. I literally, have you

Scott Benner 55:18
guys heard of Have you heard of, like, overnight mail, just

Sarah 55:24
they they would have given us that we had the Medtronic, Medtronic in our house in the January, but when we had the fafn, had to give it back. We didn't get the other one until the September.

Scott Benner 55:35
Why did you tell them the truth when they told you they were going to take it back? Why didn't you say, Oh, don't worry. You know what? My husband's gonna do it. Because

Sarah 55:42
there was no physical way for me to do it when he wasn't here. Yeah,

Scott Benner 55:46
I know. But like, why didn't you just lie to keep the pump and then, I don't know, pay a neighbor to do it, or a homeless person or something like that? I don't know. Yeah, we just didn't think. We just, it was just, yeah, horrible. It was,

Sarah 55:58
it was horrible. UK, there's

Scott Benner 55:59
heroin users everywhere. Can you just walk out on the street and go, Hey, I'll give you and go, Hey, I'll give you $1 if you put this needle, they'll be great with a needle, like, they'll be able to, you know what? I mean, yeah, I don't know anything about England. Are there heroin

Sarah 56:11
users? No. I mean, I mean, my husband comes across them a lot, but that's his job.

Scott Benner 56:16
I'm saying he could have found one that would have been able to do this for you. Like, yeah, I just felt like in a world where you fought so hard, you gave up really easy, it felt like, is it because you felt bad about it being your fault?

Sarah 56:27
It's because there was no other option. In my mind. There wasn't anything else. If I if they're saying you cannot do this, there is physically, is no way you can do this. I was like, there is no way I've screwed it up for her. I'm wondering

Scott Benner 56:40
I could be wrong. I'm wondering if it didn't take out your resolve because you felt like it was your fault because of the visual impairment, like, did it like, sap your resolve? You know what I mean? Yeah,

Sarah 56:51
because I would fight about everything else. Yeah, that was my point. I just Yeah, I think it did. I think it did. Isn't it interesting?

Scott Benner 56:59
I can figure you out, but not me, yeah? Like, yeah. I don't know why. I can't take a compliment, but I'm like, Hey, I wonder if this is what happened with you. Okay, so what do you end up with? It works, good, yeah. So

Sarah 57:11
we went with the extra it was, it was a godsend. It was fantastic. And I was doing all the tools of, like, you know, temporary basal and extended bolus and all of that. We use all of the tools, even though, again, they were like, Well, you probably won't use these. Yeah, I use them. I used everything. If that pump can do something, I'm going to use it, right? So I went all in with that. And she used that for about a year, until, no 18 months. But after a year, we find started finding this problem with you would call tunneling, yeah, every like two days, we wouldn't get past two days. On the third day, guaranteed, something is going what wrong? Why are her numbers going up? This is not working. So we started the hospital. Just thought it was a bizarre thing. Like, surely this is not the only we're not the only family for this to happen to they were like, Oh, well, we can try a different length. I'll try different length cannulas. That was it. So from six millimeter to eight millimeter, I think it was, they changed that, and then it was still happening. After a few months, we were like, it's still happening. We just have to change our pump site on day two, otherwise we have problems. Oh, well, yeah, they didn't know what, what was going on. We'll try with us these different cannulas. We can try the true steel cannula, or 45 a different angled cannula, all of this. And I was like, Do you know what? This doesn't make sense anyway. So they were trying to push us to do all of these different things, different cannulas or different lengths, and change all of this. But then Poppy started saying, Do you know what this pump is really annoying me. I was like, What do you mean? Before she'd carry it in, like, a little kind of like her belt thing around her. Never had any problems. She would wear it during PE at school, do trampoline, but never had a problem. But she just started saying, it's getting in the way. It's always banging on me. It's always there. It's big. I can't sleep in certain positions the tubes there, you've had it for a year and a half, and you've never said this before. And she was like, well, it's bothering me now. So I thought, right, you know what? This is the ideal opportunity for us to kick off and say to the hospital, we're not happy with this. So the first bite, obviously, I said, right. You know what, all these cannula problems we're having, she started to say this pump is irritating her. It's getting in the way, it's cumbersome, it's inflicting she says it's affecting her happiness, because it's affecting her life, the way she can live her life. First thing they said was, well, you're in a four year contract. So she's still got to have it for another two and a half years. By

Scott Benner 59:35
the way, isn't it free? Who are you in a contract with

Unknown Speaker 59:38
the pump company? Apparently,

Sarah 59:40
they're in a contract with them. I don't know who's in the contract with who good. So that was the first pushback I didn't have that. I was like, Well, if she's not happy with it and it's still it's affecting her quality of life and her happiness, then we need to find a solution, don't we? Plus the cannulas are not working, whatever it is. How? However you want to look at it, we have a problem. So they went away with that. Thankfully, they came back and said, well, actually, there's been some issues with that pump and that they are recalling some of them. So really, we would want to actually encourage you to get off that pump sooner. So yes, we will authorize you to come out of that contract early.

Scott Benner 1:00:21
Nobody knows what they're talking about. Sarah, no one ever knows. Forget health care for a second. It's all let me. Let me tell you something I told my son the other day, the world is being held together by bailing wire, duct tape, bubble gum and a little bit of luck. Okay, so, like, there's just no one knows what they're doing. They just say something that they heard someone else say or that they think they're supposed to say. No one has an original thought. They don't take the reins. I mean, some people do, don't, get me wrong, but, but a lot of people don't, and then you end up in these situations where they say things to you, like, you can't,

Unknown Speaker 1:00:58
uh, you can. You know, have

Scott Benner 1:01:01
you tried this? Try that. Try this. We don't know. Like, no one knows anything. They don't understand what to do next. Is very frustrating. I just you know, especially when it comes to health like this. So what'd you do? Did you just, like, Did you you go crazy? Did she get Did you finally try to drive and just drive the car right through the right through the building, exactly? Stop being exactly. Give me what I need. Oh, my God, no. So how does this how does this all work out? Like, how do you end up? Because I'm assuming you end up with omnipot,

Sarah 1:01:30
yeah. So thankfully, I had started listening. So this was all I'd started listening to you in the October of 2022, and this is all happening February. February was when she started having all the issues. So in my mind, I'm already an OmniPod person, but obviously that's not my decision to make, and within reason. So she's What is she? Then, seven?

Scott Benner 1:01:58
No, yep, seven. So she's seven

Sarah 1:02:01
and a bit. So by the when she starts saying, all this or this pump is not getting on, I'm not getting on with this pump, it's music to my ears, because I'm like, I already want you to have OmniPod, but the hospital was trying to push T slim. Clearly, they were all in the new whatever, the new control IQ, and that they were loving it. They'd approached us. They'd approached us and said, like, we're we're loving this. This is the new way forward. Once you finish with Rosh, we want you to go on this. And then we had all these problems. And they said, right, we want you on this control IQ, it's all singing, it's all dancing. And I said, Okay, we're gonna have the same issues with me filling this. And they were like, Oh, well, no, it should be fine. I actually posted in the juicebox group stay in any visual impairment that we're looking at. Tea slim, yeah, tea slim and omnipot, what? And loads of people helped with both. There were like filling tools and filling aids and all this for the tea slim. But lots of people said just the omnipot is just, you don't even need to be able to see to do it. So we did get the demo using your link. Thank you. Of course, OmniPod, com, forward slash juice box. Went and got the demo. We went and got the demo pod.

Speaker 1 1:03:08
She loved it. She was like,

Sarah 1:03:11
I can't even feel it's on. I think we put one on her. They send you two. I'm sure they sent us two, yeah. So she could trial it for like, six days, rather than just three, she had one on her tummy, on her butt, and either way, she was like, I could sleep on it. It's not in the way. It's amazing. So we went straight back to our hospital team. We're like, yes, she wants this. We want it, sort it. So that was February or March. And so again, they dragged their feet, and she finally got approved for it, and we got it, they still made us do a saline trial, even though she was already on a pump, a functioning tubed pump. What is the actual point? But anyway, so that's them. That's what they do. That's

Scott Benner 1:03:55
the point. The point is, that's what they do. There's no thinking. We

Sarah 1:03:59
don't need to do that, yeah, because she's already worn at one No, no, she had to do a second time. Anyway, June, she got that. June 2023, and then she got moved over to the OmniPod five in the August. So she literally only had a dash pod for like, two months. And then we went on OmniPod five. And again, it's not affected her, A, 1c, at all. It was in the low fives. It's still in the low fives. They said, Oh, well, you might not get as good results with the OmniPod five as what you were doing. I was like, Well, no, not if I leave it to do what it wants to

Scott Benner 1:04:35
do, but I don't, and you've been having good success with it, yeah. Well, with it, I help? Yeah, I saw somebody the other day. They're like, Oh, this isn't keeping my blood sugar where I want. I'm like, Are you bolusing? Like, we just think it was going to be magic, you know, like, it's, it's, and not just OmniPod five, by the way, all those algorithms, right? Yeah, do it yourself. Tandem OmniPod, they all, they need you to intervene. So. Times there's, there's variables about the food that you can't translate to the pump just by saying a carb count sometimes, you know. So that's really so one

Sarah 1:05:09
thing, one thing I have to sing the praises of, for the OmniPod five really about was, again, something you helped us with. So she does on a Monday night. She does Taekwondo, which is 90 minutes martial arts. And there's an adrenaline rush in there, and we didn't know what it was. She only started it about a year and a half ago, and the first few times she went, I was like, What is this? What is happening? What is going on? She walks through the door and she skyrockets. She hasn't had her tea for two hours. We did the right but I didn't understand what what it was. And then I then I worked out it was adrenaline, but I didn't know how to deal with it, until you said bonus for a juice box. Because if, if she doesn't have the adrenaline, you can just give her the juice box. And that was like

Speaker 1 1:05:53
light bulb moment. That

Sarah 1:05:56
is what we did. We actually had to bonus for two juice boxes. That's how much adrenaline she had. Wow. But we would do it.

Scott Benner 1:06:02
Sometimes you have to catch it, and sometimes you don't, right, yeah, yeah, yeah.

Sarah 1:06:06
But since so when she changed, so we did that for about nine months, it was working. She we just have to bowl us with two juice boxes the minute she walks in, leave them on the side, because they don't stay either. It's a drop off. It's not sit and watch them. It's, I'm going. So the teachers know she's I text her. We tell all about texting diabetes if she needs to do something, I've text her for that hour and a half. But yeah, so we did that for about nine months. Then she got the OmniPod five. So September, her first lesson, I was like, What do I do? What do I do? I don't know. Should I still put in that, put in that two juice boxes, or should I not? And I was like, I'm really gonna have to sit on my hands. This is so hard not to. I don't want to just watch it, because I don't want her rocketing up to 250 when I know she doesn't need to. But I thought, Okay, I did sit on my hands, and nothing happened. She She didn't go above 140 interesting. But the whole and I was like, That can't be right, how, how, how. So I stayed there for the first week, and then after that, I just dropped her off and touch wood. Apart from this one week, it has handled it every single time. Wow. And she does drop at the end, though. So the last 510 minutes, she starts to plummet. Little bit of juice. I just Yeah, little bit, or she's got glucose tabs. So it sorts out adrenaline, but it can't, it can't sort out growth hormone. There's no chance in hell that it can sort out

Scott Benner 1:07:31
that's a lot of impact. The adrenaline also spikes and kind of it goes away very quickly too. When the adrenaline is gone, the lift from the adrenaline is gone, which is why you're seeing a low afterwards, because they can't it. Can't know. It's expecting that high to come back the way on the curve that it expects, and then it the generally goes away, and you drop really quickly. It's hard, hard to deal with, but it sounds like you're doing a really good job with it.

Sarah 1:07:55
Yeah, most of the time again, now this, we've mastered it. I think most of the time. Sometimes I'm like, why is it doing that? But, and, no, I do know better than you most of the time, Mr. Algorithm, but yeah, it's definitely a godsend. I wouldn't go back to the sleepless nights 100% not. It's definitely, it's definitely, yeah, you can use it to your advantage, and you can work with it and not fight against it, excellent. It's not magic. I would, I would love it to have overrides, like you talk about with Luke, with the, you know, plus 130 you know, plus 30% for and all of that. I would love it to have that. And I hope that's something that will come in the future. It and it lower targets. I do think it does have to have that moving forward.

Unknown Speaker 1:08:39
Yeah, yeah.

Scott Benner 1:08:40
I mean, I mean, I hope, I hope they continue to refine it. I hope they all continue to refine all these algorithms. Honestly, they're going to have to, because one of them is going to do it, and they're all going to think, oh, we can't, we can't, not make ours better. They're going to have to keep trying. You know, I think it comes slowly, obviously, but you're used to slow, because it takes you a year to get everything. So it doesn't really matter we didn't really talk about the one thing that you asked to talk about and keep getting distracted. No, don't be you're doing great. Do you want to I'm a little low on time, like, do you want to go over it, or do you want to let it go?

Sarah 1:09:14
Yeah, there were, there were two things I wanted to incorporate, which I don't think we're going to have time to do both of them. But one thing that I think is not talked about as much as it needs to be, and I'm sure lots and lots of people feel this, is the fact of burnout, or the fact that in most situations, one of you has to take up more of the slack of diabetes than the other. So I do hear lots of people say, Oh, we've got a 5050 split. And I do half, and I and the other does half. And I think really, is that possible? If you're you know is, are you both working part time, or, if someone's working full time, and the other one isn't, how the hell do you get a 5050 split? I don't know many families. Who have a 5050, split in parenting? I'm not, you know, one parent will majority, do the majority of something. Okay, so I'm not set. So, for example, you know, the mom, for example, the mum. The mum might sort out all the school uniforms, and she knows what shoes she needs to buy them, and she knows that they you know, or she'll do all the meal plans, or she'll do the school lunches or whatever. Or again, if it's stay at home, dad, he'll be doing all of those kinds of things. He knows what uniform needs to be bought, booking school clubs, booking activity. I can't envisage that. It literally is a line down the middle 5050 with every parenting situation. And why it would be diabetes, I don't know. Yes, I was at home with poppy for six months. So obviously, I got a handle on it more than Chris, because he was at work 24/7 Yeah, when I started learning so reading the books, looking on the internet, found the juicebox. Listen to all the podcasts. And, I mean, listen to them, as in, I beasted myself with them, and listen to all of them in less than a year and a half. Wow. So I was listening to five six hours a day. I'm actually up to speed now. I got up to, I'm all caught up the other way, like last week. I was like, I have to finish all of these by the seventh of March, when we're recording. And I did, but now I'm like, don't have Scott in my ears five hours a day. What's going on?

Scott Benner 1:11:19
Is it strange for you to be talking to me? Yeah,

Unknown Speaker 1:11:23
because I'm

Sarah 1:11:24
only, I'm only listening to hearing you, like, for an hour, one hour a day now. And I'm like, It's really weird, but you're not

Scott Benner 1:11:31
there. I'm gonna go tell my wife that there's a person in England that is upset that she can only hear me for an hour a day. And then I'll, I'll time how long she laughs for, and then I'll get back to you and tell you, Okay, she'll be like, You know what she'll say? You should tell her to move here and live with you. That's exactly what she'll say. I'm amazing. I'm genuinely touched that you've listened to the entire podcast. That's really something, and it's, honestly, it's helping you, right? What's Poppy's a 1c last one, 5.3 Yeah, good for you. That's wonderful. Congratulations. That I feel good about, isn't that interesting that I'm like, Oh, that's nice. I can feel nice about that. Okay, yeah, all right, so you're saying that it's not a 5050, split in your house. But what did you tell me do? How much of what you told me before we started recording? Do you want to say here? This is how I feel. I feel like it's assumed that I've got it like, for example, this gets home from work. I'm doing

Sarah 1:12:30
the tea, so I'm cooking the tea. So obviously I'm carp accounting, doing that. But if I need to go out of the house for any reason, it still does fall to me. So many, times I've gone out. I need to so I work from home, but I need to go. I need to go out. I've gone to the shop so and, and it's I'm getting the phone call, or I'm getting the text, or what do I do in this? And I'm like, you do know what to do in this situation, because you've done it before, but you feel like you need to check with me. How many cards is this okay? Well, if I was at home, I'd be reading the packet. So can you not read the packet? Why do you need to ring me to ask me what that is when you can find that information yourself.

Scott Benner 1:13:06
So there's one of two. There's one of two thoughts here, like, is he just nervous to make a mistake and hurt her, or are you lording over him and you don't realize that he doesn't want to make you upset? So

Sarah 1:13:19
that's what. Yeah. So I've asked him about this. I have said, and I told, I told him before today I did say I am going to be speaking to Scott about how I feel the burnout,

Scott Benner 1:13:27
and you seem to be enjoying yourself. Yeah, okay,

Sarah 1:13:31
you don't do as much as I he said. And he said, No, I fully get it. So it's majority on you. And you know, I work full time, and I haven't got the time, I haven't got the time to look at it as much as you look at it. So therefore I know I'm not on the same page as you. I'm not up to speed as much as things with things as much as you are. Okay, my opinion is, if you listen to all the pro tips episodes, you would be up to speed. But he has listened to maybe three of them, and I did, did harp on about it, and he has made the effort to start, however, yes, yeah, I do appreciate he's got a 70 hour a week job. He can't. He's got a 45 minute drive to and from work, which I said, Well, that's two podcasts a day, yeah, but he doesn't, well,

Scott Benner 1:14:12
I agree with that, by the way. Also, is he not in a police car all day? No, oh, he's on on foot,

Sarah 1:14:20
he's in, no, he's in the station interviewing. Oh, okay. Oh, okay. I

Scott Benner 1:14:24
see. So you can't listen to a podcast while he's working,

Sarah 1:14:27
right? It's just the drive to and from work. But he says he doesn't get signal. I said you don't need signal. You can download it onto your phone, and then you can listen to it without internet. But he hasn't managed to, hasn't managed to master that. He hasn't

Scott Benner 1:14:39
figured out the internet yet? No. So do you think he doesn't want to and you're upset by that, or do you he says

Sarah 1:14:47
he does want to. I think he does want to. He says, he says he does think that he's going to get it wrong. He said, if she's with me for a day, I know it won't, her numbers won't be as good as when she's with you. I'm like, Yeah, but why not?

Scott Benner 1:14:59
What feels pressure by it Don't,

Sarah 1:15:03
don't feel pressured, and don't feel like I'm gonna berate you or criticize everything I want you to try. All right, so

Scott Benner 1:15:10
Sarah, two things. I've been married for 27 years, so let me give you my thought here, if I told my wife, don't feel pressured when she felt pressured, she'd leave me. And if that's for sure, she'd be like, Oh, is that your advice, idiot? And that would be the end of it. And so, like, I get your point. Like, just try. You'll be okay. You know that you have that comfort, right? Just listen to the like, the bowl beginning series. Like, he could certainly, like, commit to that, and then once he gets through that, give him the pro tips, and then he'll be okay, then he'll feel more confident, and he'll try the things that you're talking about. Like, he doesn't have to make me, he doesn't have to listen to the whole goddamn podcast. He could listen to some of the series. They would probably help him. Yeah. I mean, I think you listening to the podcast literally straight through. Listen. I haven't said this in a while, because there's like 1150 episodes now, but I absolutely believe if you go back to the first one and listen to this podcast, you're gonna have an A, 1c, in the mid fives. I really do think you will. And it's not because the secrets, the secrets are dripped through, but it's the way you pick up the information by listening long term and becoming immersed in it for a while. And you don't have to do it forever. You know what I mean? Like, I mean, it took you a year or so, that's what by the way, I really appreciate that. But, like, you know, I know what a commitment it is, but look how it paid you back. I mean, really, what are we talking about? You listen to a podcast for a year and a half and now your kids, a 1c is 5.3 on an algorithm that some people will tell you can't get a 5.3 a 1c that easily, you know? So you understand what you're doing. You literally became me in a year and a half as far as diabetes goes. So what it's amazing you do. So that's it. Tell him to listen to the series. Also tell him you won't have sex with him if he doesn't do it. Doesn't do it. That's pretty much the fastest way to get this done. Seriously, I don't know why. Again, I've said this before. I'll say it again. If I was a girl, I'd have everything I wanted. So I don't know. I don't understand when you guys are like, I can't get him to do it. I'm like, Sure you can. You could make me like, I would hit a homeless guy with my car if I was told to for sex. I mean, I wouldn't kill I wouldn't kill them. No, I wouldn't kill them. But, I mean, I'd like, you know, I don't come a little, like, if I knew they were going to be okay, you know what I'm saying? Like, there's not a lot anyway, use your power, okay? And then, by the way, don't pay at the end. The end go. I shouldn't have had to have done this, although your mom would have, she was a player. A player. So has your mom not been gone long enough for us to joke about her? I apologize. Oh, then that's fine. Yeah, all right. Is there anything we haven't said that we should have and do you want to hear the three titles I have written down my possible tidro Show episode. I

Sarah 1:18:02
have one, one thing that I will try and condense as much as possible for you. Go ahead, Poppy started to get anxiety, which I think again, is a thing that we would never want our children to have. But when she was diagnosed, she used to have school dinners, and we were very much like nothing's going to change. Diabetes doesn't change. Make your life change all this. So we wanted her to stick with the school dinners, not have to say, No, you must have had lunches now, because diabetes doesn't make you have to change anything. So we were adamant that she stuck with it. But it was really hard. So the teachers had to learn how to look at what she was going to eat on her school dinner. Carb count. All of this. It was a work in progress, and they did as the best they could. Okay. However, after a while, it materialized that she told me, and I mortified me, she'd always been really good at, you know, they would put her insulin in to put her to the end of the queue, so she had a bit of a pre bolus time, and then she would eat her food. Now she told me that she was forcing her food down because she knew she had to, because of her insulin, and that it made me feel so sad. It's gonna

Scott Benner 1:19:14
make me cry. I don't know why, damn it,

Sarah 1:19:16
I felt so guilty because I just thought I was like because I said, you've always been a really good eater. Because she that was it. She got ill. She had a little tummy infection, and it was making her have a an upset, sore tummy, so she didn't want to eat at school. And so they'd rung me and said she only wants to eat half of her lunch. We've already dosed for it. And I was like, right, okay, that's fine. Just can you get her to have a juice? Yeah. So it was not, it was not a problem, but the same thing happened the next day, and then she was crying, and she was like screaming, like, I can't eat this. My tummy hurts all of this. It's like, okay, don't worry. It's fine. And when she came home, she said, You forced me to eat I didn't. I just said, could you possibly try to eat this and have a juice if you can't? I said, what? I. Don't know why this is happening, Pops, because you've always been really good with your food. It's just she told me. I said, I've forced myself to eat food at school. And I was like, What do you mean? She's She said, I know that if I have insulin, I have to eat it. So even if I'm full up, and even if I don't want to eat it, I will make myself eat it. And I thought, I can't I can't believe this has been happening, and I had no clue. So eventually then, so we said, we said, spoke to the teachers. We found out she did have a urine infection, which had caused her to have a stomach ache. So I said, right when you take her down to lunch, if she only wants to eat half a portion, just dose for half a portion, let her decide before you tell her she's got to eat all of it, right? Well, it seemed to be like all the staff in the in the cafeteria were like, eagles. They were watching her. And they were like, flocking around her and going, you have to eat that Poppy. You must eat that like, really putting pressure on her. Oh, my God. And this was making her really, really, super anxious. Someone is we'd always said to her, Carrots. Carrots are carb free. Now, I know they do have a tiny amount of carbs, but the amount of portion that they give them at school, like a teeny, tiny bit of carrot, we just in, in her mind, Carrots are carb free, right? So this dinner lady had come over and gone, do you need to eat your carrots? And she was like, where? But they're carb free. She like, you need to eat those or you're not going out to play, and it just sent her over the edge. So is that with that? Was that? Was it we we said people need to stop talking to her about her lunch. And the same thing, they said, no, okay, no, but I want to talk to her about her lunch. And then the next day, someone said, she said, um, I only want half that portion of peaches. And the lady had said to her, my three year old would eat more than that. You need to eat more than that. Oh, Jesus. So it was, it was

Scott Benner 1:21:44
just all this more people who don't know what they're doing. It's, I told you, it's everywhere. Also that really made me upset. I don't know, but it really hit me hard when you said that. Jesus, yeah. So

Sarah 1:21:53
I just thought, right, you know what? We drew a line. We just said, Right? Geralt pulled it. No more. School dinners, packed lunches, straight to Pat lunches. And she now it's fine. The problem is totally gone. She makes her own pack lunch every evening, so she chooses exactly how much is going to go in her lunch, and she knows she's going to eat it. Yeah. And then we told school, so I had to speak to the headmistress. I said, I don't want anyone talking to her about what she's eating. They all need to back off. So she's allowed to use her phone during lunch now. So now during lunch is they they put her insulin in. At lunch, they set a 15 minute timer. She goes out to the playground, she goes in and eats. She texts me, saying, all done, or if there was a problem, she'd say, I couldn't eat my blah. And then I would say, right, okay, that's half a juice, or that's a go and have that instead. So no one is in the picture, other than her and me. We text, that's good. She does her own. No one else is involved, and it's alleviated so much of it, yeah, it's all gone now. No, I'm happy she I was like, this was a slippery slope into problems.

Scott Benner 1:22:55
Oh, an eating disorder, for sure. Yeah, yeah, on its way, because all these other

Sarah 1:22:59
people were telling her what she had to do, looking at her cross, examining her, forcing her, and I was like, I can't this cannot happen.

Scott Benner 1:23:06
Yeah, oh, I'm glad you figured that. I'm glad she spoke up. I'm glad you figured that out. I'm glad you shared it. Yeah, no, thank you. Okay, all right, all right, I'm a little long, but here are my four choices. You're gonna help me pick. As you know, the crack is on my list. Things you don't know are on my list, cooking, the tea, spanner wrench. All singing, all dancing. I'm leaning towards spanner

Sarah 1:23:35
wrench, wow, because you spanner wrench, because you

Scott Benner 1:23:39
use the word Spanner, and it threw a spanner into it. Here you would have said, in America, you would have said, you throw a wrench into it. I know that a spanner wrench is a spanner wrench because I was a fireman, and that's the wrench name to open the hydrants. The only reason I know the word Spanner. So what are we going to call this episode? Cooking the tea is probably obvious though. Maybe we want that one. What do you think? Oh,

Unknown Speaker 1:24:07
well, we

Sarah 1:24:09
didn't get to the ones that I thought that you were going to choose, because we haven't go ahead. I didn't incorporate into with Poppy's anxiety. So what she does every night now so that she's not worried about the next day, because she she, she always says, Oh yeah, that was it. She sometimes if she can't sleep at night, and it's not to do with blood sugar levels, but sometimes she's had occasional evenings where she can't sleep and she's just floating and turning for a while. So she has this ritual she does every night. So she says, I need energy for tomorrow, don't I? She always asks me this at bedtime, Mommy, I need energy for tomorrow, don't I? And then I will be able to eat tomorrow's lunch, and everything will be a fantastic day. And I want to relive the day, because it will be so good. So energy for tomorrow was, was my energy? I didn't

Scott Benner 1:24:54
even get to it, yeah, but you didn't say it. That's okay. We'll say, I like you. I It's on my. The list, we'll see what happens, Sarah. Thank you very much. You were really fantastic. This was wonderful. I appreciate you taking the time. What time is it? Where you are right now?

Sarah 1:25:08
It's now just gone, half past three.

Scott Benner 1:25:11
Okay, all right, well, it's only 10.

Sarah 1:25:12
I'll ask you one question at the end.

Scott Benner 1:25:14
I don't see why not go

Sarah 1:25:17
ahead. One thing we're really struggling with, and I haven't mastered this, is if her blood sugar is on the low side before a meal. So say she's ticking over at like 75 4.2 ish, nice and flat. But if you give the normal pre rollers time, so we give 1520 minutes, if we give 1520 minutes, she's going to go down and hit

60 or something. Do you instead of

doing because what? Obviously, if we shorten the pre bonus time, she'll rock it out. So do you shorten the pre bonus time and then add on extra so a super bonus? What would I do there? We can't, I can't seem to work it out. Because if she's 4.2 I know she's gonna drop massively if we give a 20 minute bolus,

Scott Benner 1:26:04
why don't you just cut? Have you tried, first of all, have you tried just cutting, just a few minutes off of

Unknown Speaker 1:26:08
it? She still seems to go quite

Scott Benner 1:26:12
down to 60. And is she dizzy

Speaker 1 1:26:13
at 60? No, she would not fit.

Scott Benner 1:26:17
And how long does she stay there? Only a minute or two until the food hits her right? Yeah,

Sarah 1:26:23
maybe two rotations of the Dexcom. So

Scott Benner 1:26:25
then, if I take the number 60 out of this equation, are you comfortable with her bolus? Yeah, it's the number you're uncomfortable with.

Sarah 1:26:33
It's the number, because the hospital nagged me at about numbers, and I'm so paranoid about not having any threes. They hate the threes. They hate the 60s. So

Scott Benner 1:26:43
all I can tell you is this, when I see Arden bolus sing, and she goes to like, 65 like, in that range for a couple of minutes after a big bolus, and then I watch it come back up again, I think, Oh, this is going to be a great bolus. She's not going to get high after this. Yeah, that's how I think about now, if you're getting lower than that, if she was dizzy, I would, if any of that was happening to Arden, I would, I would change my tune about that. And if you're telling me that making it a little shorter results in a spike, then again, I would do that. Now, if it really bothers you, she could bolus. Have a bite or two of something and wait 20 minutes, and that might be enough to balance it out. But, I mean, that seems a little cruel to let her start eating and then tell her to stop again. Yeah, I would say that if she's not getting lower than 60. Have you ever checked it with a finger stick to make sure? Yeah, and she's about 60

Sarah 1:27:41
and about that, yeah, it doesn't generally go below that, yeah.

Scott Benner 1:27:45
So this is not advice, and I'm not a doctor, but I wouldn't change anything

Unknown Speaker 1:27:48
about that. Probably.

Scott Benner 1:27:50
Yeah, okay. But I mean, otherwise, you're gonna have to the, I mean, the other thing you could easily do, it, mean, it's a pump, right? So if it's, if it's a, let's just make up a number. If it's a four unit pre bolus, you could put, you could put three units in, and then wait 20 minutes, and then bolus the fourth unit and then eat. Okay, that would probably work, because then you you weaken the pre bolus a little but not enough to it would still stop the spike, and then the secondary bolus would only be a few minutes behind it. That might be the best idea if you're trying to avoid the number, okay, split the bolus a little bit. That makes sense. Yes, yes, I'm not a doctor. Thank you. Thank you very much. Did you enjoy this? Yes, oh, good. I'm glad absolutely all right. Hold on one second for me. Okay, okay, Sarah, we're recording again real quickly. I meant to say something to you when you said about Poppy being anxious. Have you checked her thyroid levels? Hang on. Let

Sarah 1:29:01
me think, yeah, her last one was 2.2

Scott Benner 1:29:03
okay. TSH, 2.2 Yeah. Has it been rising?

Sarah 1:29:11
I don't know what the one more before that was. So that was, what month are we in? Now, that was October. They only do it once a year. Yeah, I haven't got the one from a year ago. See if

Scott Benner 1:29:21
you can get them to sneak in another one, because if her TSH is going up, if she's having thyroid issues, anxiety could be a part of that. Okay. And if she's having trouble sleeping or feeling does she feel rested after she sleeps? She feel tired? No,

Sarah 1:29:36
she says she's okay. She just occasionally has had it. We attribute it. We attributed it to once she had a fizzy drink, and we think she's, like, super, super sensitive to caffeine, and she couldn't get to sleep that night. But it does just seem to happen, like once every few months, she just cannot sleep. And I suppose that happens to all of us. Oh, yeah,

Scott Benner 1:29:56
that's fine, but the anxiety, if that. Sh keeps creeping up, or you see any other thyroid symptoms, please like, get that addressed and see if that doesn't help the anxiety.

Unknown Speaker 1:30:07
Okay, okay, I will do all right, thanks. Sorry.

Scott Benner 1:30:17
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