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Podcast Episodes

The Juicebox Podcast is from the writer of the popular diabetes parenting blog Arden's Day and the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad'. Hosted by Scott Benner, the show features intimate conversations of living and parenting with type I diabetes.

Filtering by Category: Dexcom

#890 Best of Juicebox: Dexcom Calibration Practices

Scott Benner

Originally aired on Sept 4, 2020. Jenny, Scott and the members of the Juicebox Podcast Facebook group compare their calibration ideas. Come along as we compare the Dexcom calibration practices of many people living with type 1 diabetes.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome to episode 890 of the Juicebox Podcast

Welcome back everyone to the best of the Juicebox Podcast series. Today we're going to revisit episode 375 Dexcom calibration practices. This episode originally aired on September 4 2020. And it features Jenny Smith and I talking about when we calibrate our Dexcom G sixes. It's still something I see people ask every day. So here it is. While you're listening today, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. Are you a US resident who has type one or the caregiver of someone with type one, please go to T one D exchange.org. Forward slash juicebox. Join the registry complete the survey. When you complete that survey. You are helping type one diabetes research to move forward right from your sofa. You also might be helping out yourself and you're supporting the podcast T one D exchange.org. Forward slash juicebox.

This episode of the podcast is sponsored by cozy earth. Now you can get 35% off your entire order at cozy earth.com Just by using the offer code juice box at checkout. I am wearing cozy Earth joggers and a sweatshirt right now these joggers are like the best and our sheets are super duper super, super cool. And silky and soft. Also from cozy Earth. Cozy earth.com use the offer code juice box to save 35% My daughter Arden began wearing the Omni pod tubeless insulin pump on February 4 2009. That was 5093 days ago. Were another way to think of it 1697 pods ago. At that time she was four years old. Hang out with me for a moment while I tell you more about the Omni pod Omni pod.com forward slash juice box. Today Arden is 18 and still wearing Omni pod back then there was one choice just one pod but today you have a decision to make. Do you want the Omni pod five, the first and only tubeless automated insulin delivery system to integrate with the Dexcom G six because if you do, it's available right now for people with type one diabetes ages two years and older. The Omni pod five is an algorithm based pump that features smart adjust technology. That means that the Omni pod five is adjusting insulin delivery based on your customized target glucose that's helping you to protect against high and low blood sugars, both day and night. Automatically. Both the Omni pod five and the Omni pod dash are waterproof, you can wear them while you're playing sports swimming in the shower, the bathtub, anywhere really. That kind of freedom. Coupled with tubeless a tubeless pump, you understand it's not connected to anything. The controller is not connected to the pod, the pod is not connected to anything, you're wearing it on the body tube lessly no tubing to get caught on doorknobs or anywhere else that tubing with those other insulin pumps can get caught Omni pod.com forward slash juice box that's where you go to find out more, you may be eligible for a free 30 day trial of the Omni pod dash. You should check that out too, when you get to my link Omni pod.com forward slash juicebox. So if you're looking for an insulin pump that is tubeless waterproof, and automated. You're looking for the Omni pod five, if you want to do it on your own, or you're not looking for the automation, Omni pod dash for full safety risk information and free trial Terms and Conditions. Please also visit omnipod.com forward slash juicebox.

fellow friends and welcome to episode 375 of the Juicebox Podcast. On today's show, Jenny Smith and I will discuss different ideas around calibrating continuous glucose monitors. My perspective of course will come from the Dexcom G six because that's what Arden uses. Jenny also wears the G six but she has worn the Medtronic CGM and many of you have added your thoughts to this episode through the private Facebook group. For the podcast I asked this quite Question Hey, calibrating your CGM, yes or no. And we got a lot of answers. They're all woven into this episode. At the end, I will read directly to you from Dex coms website. And of course while you're listening, I'd love it. If you'd remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, please Always consult a physician before making changes to your health care plan. We're becoming bold with insulin. I also took a few minutes from the conversation while Jenny was setting up her microphone and everything and she was admitting to not being able to do something around her house and I put it at the end of the episode so you can enjoy it. Jenny is delightful. You want to know something else about Jenny. You can hire her just go to integrated diabetes.com. Jenny Smith has been living with type one diabetes for 31 years. She holds a bachelor's degree in Human Nutrition and biology from the University of Wisconsin. She is a registered and licensed dietitian, a certified diabetes educator and certified trainer on most makes and models of insulin pumps, and continuous glucose monitors. She is also a very good friend of the podcast. So check her out. And while you're looking, check out the Contour Next One blood glucose meter go to contour next one.com Ford slash juice box to find what I believe to be the greatest blood glucose meter available. Second Chance test strips. Super bright light for nighttime viewing. It fits easily in your hand, but doesn't slip away. Well, if that makes sense or not. But it's easy to hold. You don't drop it. I like the shape. I like how portable it is. I can find it in a bag at night without the lights on. I've never told you that before but it's easy to find in a bag. And it's testing ability is just first class. Contour next.com forward slash juice box are the links in your show notes are the ones available at juicebox podcast.com. If you have time I'd also loved if you check out touched by type one.org and T one D exchange.org. Ford slash juice box touched by type one is my favorite diabetes organization. And T one D exchange. They're doing research to help people living with type one diabetes. And every one of you that completes the research. You just need to be from the United States have type one diabetes, or be the guardian or parent of someone with type one diabetes. Anyway, when you finish the research, the podcast gets a little help you don't I mean a little cha ching, and you're helping people live better with type one diabetes. It's a great organization 100% HIPAA compliant, absolutely anonymous. You can take your information out at any time, just tell them look, I don't want to be a part of this anymore. If you want to write so there's no pressure, you'll never have to go to a doctor's office never have to go to a testing site. And once a year, they'll ask you a couple of questions to keep your information updated. And your answers help shape type one diabetes care. It's pretty cool. Being Arden's parent, I was able to fill out the survey, it took me less than 10 minutes. And I did not find any of the questions to be like I was I was never like, oh god, why they asked me that was all very pretty simple actually. was easy to do. I think we're going to record an episode today that has the opportunity to be very controversial. Oh, great, but not in a way that I think I don't think it's gonna get us in too much trouble. So I this is gonna sound crazy, right? But I want to talk about how you manage your G six. As far as calibrating we're not calibrating it goes. And I asked online and got 77 replies. I just said to people

Jennifer Smith, CDE 8:53
and are all they are they're all different.

Scott Benner 8:55
Oh my god, all of them are so different. So it says I said Dexcom calibration thread share what works for you. And I did say your tips may be used in an upcoming episode of the podcast. So first, I guess we'll talk about what we do and then we'll dig through all of this now for clarity right that I mean Dexcom you know their I guess their public statement is that the Dexcom G six does not need to be calibrated.

Jennifer Smith, CDE 9:25
It doesn't need to be unless it's unless the system asks for a calibration Okay, in my year and a half of use of G six now I've I think I've seen it asked for a calibration maybe twice on its own like you know, like a this is not right or I think one of them might have been you're not right I'm gonna give you a calibration then the system was like no, no, no, no, no. I'm going to ask for calibration again in like 30 minutes or something. I think what kind of did that Yeah, technically G six isn't supposed to require a calibration through the whole 10 days of life, right? Unless it requests

Scott Benner 10:09
one. Okay. All right. So there's a whole bunch of information on the website about it. I'll probably read it at the end, just so that it's in here. By the way, keep in mind, I did not tell Dexcom I was making this, I don't do that. So I didn't, I wasn't like, we're gonna do a calibration episode. It's just something people talk about all the time. And every time someone talks about it, it's like religion or politics. Do you know what I mean? Like, someone will come in and say, well, here's what I do. And 30 people be like, that's wrong. Don't do that. I was like, wow, everyone has such feelings about this, you know? Yes. So obviously, I think whatever works for you is what works for you. But Jenny, do you do you have like a, like a way like, when you start a new sensors, or a thing you do?

Jennifer Smith, CDE 10:55
You just start a new sensor. I pop it in, I expect. It's funny. I, I see a lot of people you know, work with a lot of people are like, it always kind of like you just said it is always low for a one hour for five hours, six hours after I started up, I know that it's just going to read me low. And whatever. I'm kind of, I think I'm sort of odd in that. Sometimes when it gets going. It is spot on. And I always do a finger stick because I always want to verify where it is. That's just my habit. Yeah. Sometimes it stays completely reliable. From the get go. It's great, right? Sometimes it's a little bit off. But then as it kind of keeps going. It gets right on with a finger stick. Yeah. And sometimes it has that weird. Low. The fun thing about that low is, it always seems to be if I have to change the sensor at night. It's gonna be low. And then I'm gonna be fighting the annoying alerts. All night

Scott Benner 12:08
long. All right. Okay. So is the time that I can relate to what you're saying. I might take a detour for a second here. But before I do your, uh, your your spotty on your end. You plugged in the Ethernet, right?

Jennifer Smith, CDE 12:22
I did plug it in. Yeah. All right.

Scott Benner 12:24
Make that mic a little closer to you, please. So I better i Yes, I do think that. What's that old cartoon with a round head? And do you know what I mean? It's like, if something's gonna go wrong, it will and it's attributed. How is it possible? I can't remember Murphy's Law. Okay, was it a cartoon?

Jennifer Smith, CDE 12:46
cartoon? I think it's actually, I don't know that it's necessarily a is maybe it is a cartoon. I don't know. What am I kidding? No, no, it's like rule of thumb.

Scott Benner 12:55
My thinking of I think I may have had a mini stroke just now because I don't think there's any cartoon associated with Murphy's Law. Okay, let's get away from that thought. I

Jennifer Smith, CDE 13:04
think that this might also be the issue between my voice. I, well, it came with the mic. And I always try to be very protective of the mics. I always put the little Styrofoam thing she's

Scott Benner 13:20
talking Styrofoam between the microphone and her mouth when you throw that out. Please. No wonder you can't change that light bulb. Everything you said about the light bulbs thing in the episode now just

so yeah, so I said at the beginning, but just to reiterate, Arden CGM is usually go on. And then they read perfectly. And then sometime in the first hour, it just decides that she's low, like, you know, way lower than she is. And if you let it ride out, it comes back up. Now

Jennifer Smith, CDE 13:56
hit a particular time. Do you have like a defined time that usually

Scott Benner 14:00
Yeah, I think in like, if I don't see it in like three or four hours, then here I go. I calibrate it. If it's not that now I don't calibrate low to 90. Right. So we'll talk about that. Like you can confuse the CGM. If the reality is, if the reality is too far from where the CGM thinks it is. Right? You can't calibrate it because it just goes does not compute and you know it, you fry its mind. And it takes forever for it to come back from that. But know if she's, if she's 100. And for clarity, too, I think this makes sense to say obviously, we're using the Contour Next One blood glucose meter. If you have like an old Genki blood glucose meter, you know, the G six is probably way more reliable than your old meter is right but I'm very comfortable that this meter is is pretty spot on. And so if the meter tells me she's 100 But it says she's 60 Well, then that's too far apart, obviously. And so I'll calibrate it, but I'll tell it like she's 75 and kind of coax it up, and then test her again a little while later and coax it the rest of the way. So that's one of the ways I sort of, if it's too far apart, I calibrate but I don't you have no

Jennifer Smith, CDE 15:25
timeframe to calibration, coaxing kind of way, like you said, and if it gets up to par quicker, you probably don't calibrate again, or at all it does. Then you'll calibrate again. But that's not like a defined time period after that initial coaxing.

Scott Benner 15:43
Yeah, yeah, I don't have like, I don't have like a magic number to it, like, like everyone else does. Like, here's a person who said, over 50 Points off, I wait an hour for blood sugars to stabilize. And if it's still off, I pull it and get a replacement. Well, that seems aggressive. And I wouldn't do that. Because last night, like I said, Arden's sensor went on. Around seven, came online, around nine was great. Said she was low, around 10. She was in the shower, but I don't think that has anything to do with it. She gets out. It's wrong for a while. And then it just is right again. And then it just shuts off for like, two hours. It's what last night was that was last night was an uncommon occurrence for us, we don't usually lose a signal during it. But as it came back on, I calibrated it probably two times overnight. And then it's now it's it's beautiful. Like if I use this person's theory, I would have pulled it off. And I knew not to pull it off less than I was like, No, this one's going to come around. Right? You know, and it did. Tina says that I calibrate if it's way off after warm up. But only if it's a stable arrow. I didn't do it once and waited for it to catch up and that sensor ended up being not good. So there's so much anecdotal conversation in this thread. Everybody knows, I bet you if Dexcom was here, they would just tell you like, Don't calibrate it. It'll it'll figure it out. Right? But what do you do when it doesn't figure it out?

Jennifer Smith, CDE 17:29
Yeah, that's when people get frustrated like this. They're like, well, it's clearly not doing what I want it to do. I haven't calibrated so either I'm just frustrated enough to pull it off and start a new one up. Or they calibrate and then they calibrate and then they calibrate and then calibrate and you know, I think Dexcom in the first 24 hours tells you not to calibrate leave it alone, the system should write itself after that. If the system is off compared to finger stick, then if your glucose is less than 70, you can calibrate if there's more than a 30% difference between finger stick and CGM. If your glucose is more than 70, and finger stick to CGM is off by more than 30 points, then you can calibrate. Okay, so those are the rules of thumb that at least used to be a piece for Dexcom in terms of when they would say, okay, it's okay. Now to go ahead and calibrate. Yes, the system technically doesn't require them. But if it's this much off, you could calibrate because clearly, it's not keeping you where your finger sticks are. And again, I you know, the fact of using an accurate blood glucose monitor. That's huge. That's huge.

Scott Benner 18:52
You definitely can't use an old technology. Now. There's a Listen, I'll make this argument all day long. If you've got a 10 year old meter, and you've got a Dexcom G six, you trust the Dexcom G six, not the meter, and you don't tell the Dexcom who might really know that your blood sugar is 90 that Oh, no, no, it's not it's 120 This old busted up meter I have here says so you know, because then then you're then you're literally telling the CGM what you're really 120 and it's going no, we're not. We're 90. And that causes confusion. You know, the next person in here. So Stacy goes. Don't calibrate. Install the sensor. When the BG is most stable, like right before bed, stay hydrated. Learn what the trends are for you or your child because everyone is different. Thanks again for the pakoda it's not about that. But so her explanation is she doesn't like to put on a new sensor in a time of blood sugar turmoil, correct up or down or anything like that. Is that also something that helps do you think

Jennifer Smith, CDE 19:54
I would expect that it would help? Yes, I mean, I don't. My personal Do I pay attention to that? No. I mean, when my sensor dies, I replace it and I started up. But it for those who do have more issue with sensor accuracy from the get go, it could be a very good rule of thumb because it used to be, I mean eons ago, when sensors first came out, that was the rule with the calibrations, make sure that you have a stable horizontal line or a horizontal arrow. Or there's there's not a very large rate of change happening, so that the system can kind of get on par with what it's sensing in a more stable setting.

Scott Benner 20:38
That to me makes sense. Because if you're rising quickly, and at the moment, you're 71, and you tell the thing, you're 71, it's aware that you're rising your meters not. And so by the time you put the number in, you might be 80. And then that's also well, so. So it's interesting here, because the next Lisa comes in and says, in these books, these two people are parents, it's interesting the difference between parents and maybe this is where we really give parents and people with type one a little extra, because you know, they're paying attention a little extra, right? Like you just said, like, I'll put my damn thing on whenever I need to. And that's the end of it. But Lisa said new sensor inserted and warm during stable time, she says the same thing. And then she says when it works for her stay hydrated, avoid rapid blood glucose changes during the warmup. And the first hours. For example, that looks like they exercise physical exercise be suspicious of unexpected values in the first evening, I 100%. Believe in that I you know, first day of a Dexcom. If I don't trust what I'm seeing I check, right. She says she gives a little rule of thumb here. If way off from a finger stick and a flat arrow. I calibrate a value in between but never more than too many miles. Or 36. Oh, she's from? Oh, yeah, at least I think is Australian at a time. Normally given one, the sensor gets a brain normally given one a sensor gets around. I don't know what she means by that. But so that's it for her right? It's way off from a finger stick. And you have a flat our all calibrated value in between but never more than the 36 points off for Americans. So I think what she's saying is, if the if the things that if the sensor says she's 100. And the meter says she's 136 She picks a midpoint and tells it oh, I'm really 118. That's what I say

Jennifer Smith, CDE 22:33
sounds like yeah, that sounds like what you're doing

Scott Benner 22:35
to coaxing it towards the truth. Right? Yeah. It's like the first hour of interrogation after you've been arrested. We don't go right. We don't go right for the for the idea that we start off with. So are you there?

Jennifer Smith, CDE 22:50
I do have to say, you know, I guess I didn't, I guess I didn't really think about it in in terms. Maybe subconsciously. I was thinking about it. But in terms of like the comment about starting a new sensor before exercise, I don't do that. Okay. I will, I guess, again, subconscious level, I will start it when I'm not going to be moving so that things are moving quicker. I just do finger sticks. If I have a sensor that dies before I plan to go out, I just do some finger sticks and go about my exercise plan.

Scott Benner 23:25
Yeah, well, we, you know, we've run into situations before where we're, you know, throwing on new equipment. Honestly, whether it's a pump or a CGM, and we're running out of the house or Arden's leaving, but we're going to split up. And I think I must always say, hey, look, that's a new pump. So, you know, let's be extra careful. That's a new CGM. Pay attention to how you feel you should probably test in an hour. Right? You know, I think we all have feelings around technology, like, you know, a continuous glucose monitor, or even an insulin pump site isn't a television, it's not just like it works. This thing should do exactly what it's supposed to do every time this. There's also a dance it's doing with your physiology. And that's different for many, many of us, and not always repeatable in the same ways. So,

Jennifer Smith, CDE 24:17
right, like, I think there are some people to someone who is a very true listener to your podcasts, who I've been working with for a bit and he actually wears two sensors, he wears G six, and he wears a libre, at the same time interesting. And, you know, a piece of it is the benefit with the pumping system that he uses when it's when he has a new sensor. He wants to be able to continue to feed glucose values to the system in order to keep it running right and doing what it's supposed to do. So he uses the libre data then to plug in the glucose values in order to not have to do finger sticks in that time period. I'd like to be able to still give it glucose values, which I think is, you know, if you're not, if you don't really care about wearing more robotic parts, that's a great idea, you know, those time periods too, and I've had them. G six for me has been kind of funny I have, I would say I have really good accuracy with it. But by about day eight on 90% of my sensors thus far, day eight, I start to get sensor error, wait three hours, and then it'll come back. And I'll get a little data and then it'll give me another sensor error, wait three hours. And at this point, if I get it twice, on day eight, I'm like, kaput, the air the sensors done, I take off, I call it in Dexcom is great. They've send me new ones. They always ask the same darn questions. I'm like, I don't know why it's dying on day eight for me, but it is. So. But I mean, in terms of units, and just the time periods when you get those errors, having a backup, like wearing a libre, which again, also doesn't require any calibration, kind of can give you a back up in terms of your initial system

Scott Benner 26:08
overlap it, you're

Jennifer Smith, CDE 26:09
right, it's a little overlap.

Scott Benner 26:11
Well, you know, and we do testing in that time, like I, I don't I agree with you, when when I see people who are like, Oh my god, the worst time in my life is the two hour warm up when I don't have Dexcom. Right. And I think those people must be newer to diabetes, or to decks or in general, because I've never once thought, Oh, my God, we've lost the CGM for two hours like this thing. Like last night it you know, it, um, it lasted the full 10 days, like right up till to the hard stop. And it wasn't a problem once during the thing. And then the next two hours, I just hold our nose, like they get an hour, just test. And if you need insulin, give it to yourself, like, you know, the way we did it for years and years and years before this technology exists.

Jennifer Smith, CDE 26:55
I feel like that's probably the case. And it's, I sort of have, I compare it to kind of being like, you're on the mothership, and all of a sudden, you get like, spit out the back door, and now you're like, Lost in Space? Where am I traveling to? What's going on? I mean, quite honestly. fingerstick I mean, it's I know that and for many parents, I think it's hard when you've gotten so used to a system that you feel like you're saving your little ones fingers. Yeah, you know what? They're going to be okay. It'll be alright, if you stick their finger, you know, they'll be okay. If you get information that's going to help in the short term,

Scott Benner 27:37
right? I'm helping a person right now. And I said, Hey, why don't you check with the meter, and they have the contour. So I was like, I'm pretty comfortable with this. And they responded back and we're like, we don't we didn't ever test. And I said you probably should have a little bit. And you know, and so and now is one of those questions. Why do you want me to test right now? I said, because we're about to do something. And I want to be 100% sure we're doing the right thing. And I don't know you. And you know, I don't know when you put the CGM on, I don't know how you've managed it. Like I just want. I want a little peace of mind here. Right? Don't take your peace of mind from an old meter. But you know, at the same time, okay, ready? What do we have here? Dana's got some solid advice. I think I've probably calibrated every sensor a few times, but it has to be a flat arrow. I use decks, comps for trends, and a finger pick through a finger poke throughout the day. So if it's consistently off by 10, or 20 points, over two and three or two or three checks, then I'll calibrate. So if she's off by more like between 10 and 20 points, two or three times, then she brings the CGM back. I have to admit, I would do that too. I don't know that, that she's saying she does it consistently through every sensor. We don't do that. But if I saw that, I agree I would do it. You know, and Arden's a one see very closely matches her Dexcom data. Right, so I'm comfortable that I'm doing the right thing.

Jennifer Smith, CDE 29:11
Yeah, mine does too. And that's a lot of people do some comparison. I mean, I'll usually get emails from people and they're like, Well, my my GMI from tax calm was telling me this, but my agency came back at this what's what is the deal? You know, and I know that we've talked about that before on a couple of other episodes, but I mean, you have to understand the difference you know, blood glucose versus interstitial glucose, a little bit of variance there. Could be I myself also have very good comparison between the Dexcom average and my actual Awan See, they're they're close. I think that the last one was within like, one point or point one.

Scott Benner 29:54
Well, that is that is definitely how I, in the end, assess whether or not I I'm managing that sensor Well, right. And it's funny too, because, you know, back in the day when people were rampid for information back when information used to go really slow, like a new CGM, you know, the G five would come out and people right away is I get the notes. Scott doesn't work review it, Bob a lot. I'm like, I'm not going to know for three months. Like, why do you?

Jennifer Smith, CDE 30:20
What are you talking about? Ask me two days after, right?

Scott Benner 30:23
Here's how we'll know three months from now I'll look at Arden's data. Somebody sent me an email and said, Please say data for me. So I'll look at Arden's data. And then I'll look at her agency. And if they match, I'll say Hmm, that CGM must have been pretty good. Because there's no other way to tell. And so I do think that this is kind of crazy, because it's user error. A lot of the times right and not error, like, oh, you screwed up, I think, Oh, you don't know how, which is why I want to put this this episode together. Because it just it is like sometimes this thing needs a little massaging. Chelsea said, we calibrate only if the arrow is stable. Usually first thing in the morning, and before I go to bed, keep hydrated. Never calibrate when there is no arrow? Because she believes rackets that means the sensor is confused in general, right?

Jennifer Smith, CDE 31:19
Correct. That means the sensor is it's still giving you data, but it's it's making sure like all of its little algorithm, whatever it's doing internally there, it's not giving you an error, an arrow of direction, because it's seeing a glucose value. But there's there's make sense for them. Yeah, it's kind of confused, I guess. Yeah.

Scott Benner 31:41
She goes on to say try to calibrate when food or rapid insulin is on board. And some people say this is her gleaming I think what other people said to her that works for her, insert it let it marinate overnight and then calibrate in the morning and in fairness, Jeanette came in and said this and put arrows to it. Like she was like, I completely agree with this one. Next person says we rarely calibrate. We know that the de Dexcom will oftentimes be off a bit in the first 12 hours. If you do calibrate, do so when numbers are stable and not dropping increasing quickly. Right? Yeah, see people are starting to hear

Jennifer Smith, CDE 32:21
idea is not, it's not I guess, proprietary to Dexcom. A lot of people with Medtronic do exactly that as well, because of I think their sensor has long term been a little bit more wonky, kind of in the get go kind of stage. So there are a lot of people who even with the older Medtronic sensors would let it do that, like marination, they'd sort of inserted at night, they'd start it up first thing in the morning, still get another two hours of wait time period, but it was enough that they got rid of that sink in period.

Scott Benner 32:57
Have you ever seen people put a sensor on but and then cover it? Yeah. And not not at all, like put a transmitter in it or anything like that. I've seen people do that. In fact, I've

Jennifer Smith, CDE 33:09
had a couple of parents who do that with their kids kind of this marinate idea. They'll use that. Whatever it's called caveman. It's like the the sticky wrap. It doesn't really

Scott Benner 33:17
stick stick. Like if they give blood now they wrap it around your cotton, right? Yeah,

Jennifer Smith, CDE 33:22
exactly. So what they'll do is they'll put the Dexcom on, not put anything in it like meaning like a transmitter. And then they just wrap that around, let it sit and then they started up when the actual old the old sensor dies.

Scott Benner 33:36
Because and Dexcom has been on and in the past obviously a lot and they've they've you know, I've been told more than once. Right? There's this there's this wire that goes in and it needs time to I mean, let's say acclimate to the interstitial fluid get wet. Yeah, I think it's soaking in right I think is the idea. It's I guess it's like, you know, it's it's like taking a log and dipping it in water and pulling it back out right away. The logs not wet in the middle from that, but if you throw it in there for a few hours, it'll soak through. Gabriella, I only calibrate within plus or minus 30% of Dexcom readings directionally towards my readings directionally towards my meter, I don't get into calibration loops as a result. Have you ever seen a calibration loop personally? Where it asks you to calibrate you calibrate and then it tells you to calibrate again?

Jennifer Smith, CDE 34:28
I have not not with G six. I have had that with G five. But again, not often either with that,

Scott Benner 34:34
I think I've seen it. I honestly have to say maybe twice. And we've gotten out of both of them by being persistent and and doing it. Here's a question for you. Let's say you calibrate and let's I'm gonna try to make up a number here. So let's just say your blood sugar's really 90. The Dexcom says Is your 120 and you put in 90, and it says 110. You know, if you put in 90 Again, it will agree with you, right?

Jennifer Smith, CDE 35:11
It did not done that a

Scott Benner 35:13
double calibration on close numbers, forces it to agree. Now, the question my head always is, does it stick then is that right to do? Or is it just making me feel better? And all I can say is that when I do that, things go okay afterwards, but I don't know if that's right or wrong. This is probably right, where I'm thinking right now people are listening. And they're just like, they're pulling their hair out and punching the dashboard of their car. And they're like, such bad information. Let's keep this in mind. I'm just telling you what I've done in the past. I'm not telling you to roll. I'm certainly not saying Dexcom says to do it. We're having a long conversation here about what other people do because it's such a varied thing. Don't do it if you don't like it, like, you know, or try it once and see what happens. I don't know. But I don't even know if the outcomes right or not. I do know that it makes me comfortable that you've

Jennifer Smith, CDE 36:07
done it a couple of times. So it's Yeah, seems like it works when you've done it.

Scott Benner 36:12
Well I've done it enough to say it out loud and let my voice be recorded while I'm doing it. Yeah, I willy nilly on here yelling about diabetes stuff.

Jennifer Smith, CDE 36:19
Right? Right. Yeah, I I've never tried that. I guess the next time that I feel like it warrants a give it a whirl. See what happens. Mike, give that a whirl and see how that works out especially at two o'clock in the morning. I'm like, I'm not Oh.

Scott Benner 36:36
Elena says I don't calibrate I find that calibrating leads to far more inaccuracy than just letting it go. With that said, I do think the first 24 hours or so of a new sensor can be rough. And it eventually works itself out. Tarot, we check on the first day. If it is 20 Points off. We calibrate. And if it helps, and if it helps it not to be so wonky that day. Any other time we spot check it, it's right on. That'll stop it. She's saying okay. Molly, I have never had to calibrate. And when I test as long as my arrow is stable on my Dexcom they match within three to eight points. Wow.

Jennifer Smith, CDE 37:17
That's great. Oh, God, I think you know, and I think a big piece of this too, which has now been commented a couple of times by people is hydration. That is a and I know we've talked about it before I've mentioned it before that is just enormously important. And I think especially for for kids, little kids who you kind of have to coax them to drink more, right? And remind them I mean, kids without diabetes, I don't even think parents pay attention, honestly, to how much their kid is drinking through the course of the day. But kids with diabetes, certainly, especially with the fluxes that they have in their blood sugar. Hydration is huge. And then you've got kids who are very into sport. I mean, they might be doing something for four hours, you know, four times a week. Make sure they're drinking. Yeah, absolutely. So but for sensor specific, though hydration is so important.

Scott Benner 38:17
Well, you know, your point is well taken because today in the in the private Facebook group for the podcast it somebody asked about their creatine been been creatine or something like that, like yeah, they're

Jennifer Smith, CDE 38:29
creatine been is. Yeah, blood urea nitrogen is what it stands. Thank

Scott Benner 38:33
you, Jenny. And everyone who came in who had any kind of a medical background was like, Look, if I was you, I would just make sure I'm hydrated. You know, Natasha says, we used to try to calibrate after the first 24 hours if Dex was still over 20% off for the last sensor change. We did a pre soak Oh, see that? The new sensor, they soak their sensor overnight, and then snapped in the transmitter in the morning. And it worked without calibrating the x was very close to the Contour. Next One, thank you for the plug once the 24 hours past nice X was also less jumpy during the 24 hours. And

Jennifer Smith, CDE 39:11
I've seen that too. That's actually an interesting comment. You know, with G six, the the system has smoothed the data, right? So you get this smoother trendline with less jagged down, but a lot of people have questioned in that first like Let's even say 12 hours. Some people do get that like that little object where you can see that the numbers those little dots every five minutes they are more up down up down versus this nice smooth into each other. So that's interesting that somebody kind of commented on that.

Scott Benner 39:50
Well someone comes in and asks Do you can you explain pre soaking and she Natasha went on and said before the current sensor expires, apply the new sensor but not but do not move the transmitter. So the type, so the type one will still be wearing two sensors one active one inactive for a period of time, this gives the new sensor a chance to acclimate for longer than the standard two hour warm up period. If you do this, be sure to cover the new sensor to protect the delicate electronics. We use a band aid Oh, a band aid i Yeah, this is completely off label. Obviously, most of our base of the podcast is off label right?

Jennifer Smith, CDE 40:25
I would expect that a band aid that's one of those like larger band aids would probably be the better option just to really protect that internal part of the sensor. Because you know, the funny thing about G six, and I didn't realize it initially after I started to wear it, but G six has this like sticky stuff. Like inside. And when you remove your transmitter, you can see it on there. And that's why you have to clean the transmitter off every time you take it off. Does

Scott Benner 40:53
it remind you of like petroleum jelly or something? I don't know what it is, though.

Jennifer Smith, CDE 40:56
Yeah, it's like Carmex or like, you know, like, yeah, like petroleum jelly gynae.

Scott Benner 41:03
I, I definitely know what you're talking about. Yeah, it. Listen, Linda, we never calibrate. And I have to say to their sensors for weeks in a row that we don't calibrate. Like, I don't need most like, this is interesting to do. But I'm not a person who's in a position of saying, Oh, wow, we really need to figure out what works. Because what works for us is, you know, like,

Jennifer Smith, CDE 41:28
do what works for you. And you might have censored a sensor that one. One, I guess, idea of what to do with this particular issue. It could be different three months down the road when you've got another sensor.

Scott Benner 41:42
Oh, can you get sorry?

Jennifer Smith, CDE 41:45
I thought I had it turned off. But yeah, it might be three months down the road that it's a completely different calibration need, right that you do something completely different this time versus the last time that you needed to calibrate.

Scott Benner 42:00
Yeah, there's three people here, Irene, Jeanette, and Jolie. And they all say the same thing. Like, once in a while, like I put along that works great. But sometimes I get it where it asks me to calibrate twice after a warm up, even though it's not supposed like, have you seen that. And if

Jennifer Smith, CDE 42:14
I have and I didn't see that until Gosh, a cup, maybe it was the beginning of this summer that I put a sensor on. I gave it the code and accepted the code. And after the two hours, it was like, You need to calibrate with it with two finger sticks. And I was like, but I fed you a code and then it I believe it's every 24 hours then if it didn't, for some reason register the code even though it told you you did, you'll get the two hour warm up two finger stick and after that once a day, you'll get a request for another calibration every 24 hours with a new sensor.

Scott Benner 42:48
Okay, how amazing is all this by the way for it? Listen, for those of you who have walked into diabetes during the time of glucose monitoring, you're probably thinking, you know, oh, that sounds like a problem. And for anyone, Jenny or me with Arden, who were around before this, I think this is all like astonishingly amazing and just magical. You know? Danielle, we rarely check with a finger poke. We only check when we are surprised by what Dexcom is telling us. I think that's important to remember. That is exactly how I feel about it. It's that like when I don't know how to I don't know how I know. But when I don't trust it, I don't trust it. And right, you get that over time. I think

Jennifer Smith, CDE 43:30
it's kind of like with the ones that as you said they start up and it just reads like ello W Yeah, your low your blood sugar is like 39 I'm like, Yeah, I don't feel 39 I know. I mean, I have you know symptoms, thankfully for low blood sugar still. And I would know a 39 I mean, I really would. And so I can be like yeah, that's totally wrong. I'm gonna do a finger stick and it's going to come back at like 78 or like maybe 90 or something you know. So symptoms are another piece to it as well if you are feeling very differently than what the CGM is telling you. Even if you haven't done a finger stick in three months. Yep, figure out where your glucometer is.

Scott Benner 44:10
Go find that first. Megan says I don't calibrate if it's an accurate we go off finger sticks. Excuse me, why can't I say finger sticks until Dexcom becomes accurate? My daughter has been wearing Dexcom for two years. I only calibrate if it's off by more than 50 points which is rare. And I only calibrate when the the error was level was he says I've never calibrated a Dexcom CGM. Wow, yeah.

Jennifer Smith, CDE 44:40
That's amazing. Yeah. Must have been must be somebody then who's never been on G five because that required

Scott Benner 44:45
you to have calibration, right? Yeah.

Jennifer Smith, CDE 44:48
Although interestingly, I have had people who've worn GE five who have said they want it back calibrate. I just don't calibrate it. I've just let it and honestly the system will All, it will keep running unlike G four, and the previous, if you didn't calibrate it, it would just stop giving you information. G five would keep giving you data. Okay, it would keep asking for calibrations, but it wouldn't. It wouldn't stop giving you data. Well,

Scott Benner 45:16
you're right. You're 100%, right. Oh, I remember that too. Yeah. Okay. Sara in the morning with no carbs or insulin on board with a level arrow. So we're starting to see some similarities with people's answers that are that are repeating over

Jennifer Smith, CDE 45:31
I mean, I think if you could put it together in a simple, it would probably be one be hydrated, yep. To make sure that the glucose value is stable, or that you're in a stable time period, meaning you haven't eaten like the whole basket of like, chicken fries, and like ice cream, and now you're waiting for your sensor to give you good data. Right? Well,

Scott Benner 45:50
I'll tell you what, there's a couple of there's a couple of statements in here that really does shine a light on what anecdotal information is, because there's a person and they're even putting a laughy face in it, who says, I usually only need it during the first sensor session with a new transmitter. I feel like the new transmitter needs a few days to learn me, the transmitter has nothing to do with the measurement of your blood sugar. It's just sending the signal right to but even so that's it right? Like you see something over and over again. And if you misconstrue it, all of a sudden you feel like it's a roll. You know? It's like when people's likes Murphy's Law. Oh, that thing? Always. I love it. When people say this about diabetes, this stuff always goes wrong at the worst times. And to that I always respond, what would a good time be for it to go wrong? Right? Every time feels like a bad time. Exactly. Yeah. Going along and living your life and then all of a sudden, something you're counting on stops working. There's a good time for that.

Jennifer Smith, CDE 46:53
You're always stinks no matter if it's two o'clock in the morning or when you're on the beach vacation or your whatever, in the middle of a basketball tournament. It's never a good time.

Scott Benner 47:05
Jeff Brent and Jaya, I don't calibrate.

Jennifer Smith, CDE 47:11
If I'm curious for those who are not calibrating

Scott Benner 47:14
how close they're a once the match is there?

Jennifer Smith, CDE 47:17
I'd be curious about that. But I'd also be curious if they're also people that may not be doing finger sticks. So they may not really know if their sensor is really off. Yeah, I mean, because, you know, having had diabetes as long as I have. I didn't have sensors for a good majority of my life with diabetes. It didn't. And I mean, my first sensor was in 2006. That's when I first started using them. And so I was always, I still am, I still do finger sticks during the day, even if it's not to check my CGM. It's because it's time to eat. And I'm so programmed. I'm just programmed to do a finger stick, I can do a finger stick when I wake up in the morning, I do a finger stick at lunchtime. I do a finger stick at dinnertime. I always do it before I go to bed. And I'll even do more than that during the day with exercise, right? And I just it's just a routine. It's like brushing my teeth. It's not something I think about anymore. So I think that I'm also a little bit more in tune then with Oh, my CGM is reading this. My finger stick was this, you know, and for those who pump especially if you're relying on the CGM, but you've not really been doing finger sticks, and you're kind of wondering Why will my GMI from Dexcom is telling me this is my average. But every time I get my a one C done, Gosh, it looks like I'm a lot higher. Yeah, well, it. It could just be that CGM just isn't reading you, as accurately. Do you remember

Scott Benner 48:53
a long time ago in the original Omni pod? PDM. There was the meter. Yeah. And that the meter wasn't it wasn't great. And so that's how I figured it out. Right. So how did I figure out the meter wasn't great, because Ardens a one C kept coming back higher than it should and it didn't matter. This is before CGM. And it didn't match what the finger sticks. Were telling me. And that's when

Jennifer Smith, CDE 49:20
I figure out how to play with the kalam Yeah, then you change

Scott Benner 49:22
the calibration code and the meter works better. And so I used to it was 17 or 18 Right? All the all the test strips for the Omnipod PDM are code 1616 And some people change the meter to code 17 And some people change the meter to code 18 depending on which ends up being more accurate for them. We were 18 I know a lot of people were 17 Yes, I was 18 Yes. And then Ardens a once he started matching my expectations just like that, so you can be mad about it if you want but at this point now that meters a decade old, and you know and so the people were like I can't believe that the new dash doesn't have a meter on it. You You don't want a meter in your technology because the meter keeps getting older. All of our new technology now is updatable, right? It's like your iPhone, you want to put a new operating system on it, you can a new app. But if you stick a physical piece of equipment into it like a meter, now suddenly you're stuck with that meter forever. And that's, that's I don't think that's a good play. And I think that's why if I had to guess why on the pod took it out, I think that's one of the reasons. It could be. Yeah,

Jennifer Smith, CDE 50:29
I mean, it's also the reason I think that they've decided, you know, now when you get Omnipod, the dash system, you get the Contour. Next One, right.

Scott Benner 50:37
And the PDM is now really just sort of like a lockdown Android device. Right? Right, exactly. But it's it. But the point is, is that I saw that as far as moving on, I kept thinking like, Oh, my God, this meters Old, old, old, and I felt tied to it at that point. You know, I am. I hate to say this, but I am so much more happy with the Contour Next One than I was with the PDM meter. Back in the day, I'm thrilled with it. And I think that to people listening probably were like, Oh, my God, Scott's taking a meter ad. We know he uses Dexcom, he probably doesn't even use a meter, we use a meter every time we need a meter. And it's a lot more than you think it is. And it's not because Dexcom is not great. It's for the reasons Jenny just said. So I was actually kind of

Jennifer Smith, CDE 51:21
curious, you know, I my insurance doesn't cover the Contour. Next One I wish it did. It covers the accucheck Guide me, which is another very similar to the contour its accuracy kind of parallels, right. But the interesting thing is, I do have a Contour Next One. And I had like the sample bottle of test strips that kind of comes with it. And so I played once I got my accucheck I was like, I'm just curious. And they were pretty spot on with each other, quite honestly, which was nice to see. But also then went back to my old school PDM and my freestyle light test strips and and I figured out that actually that code 18 is the one if it was the code 18 It was within like two to five points of the Contour. Next One, the accucheck. Yep. So that's old school as it is. Code. I

Scott Benner 52:11
know. I know. That doesn't make sense to a lot of people. But code 18 for code 16 strips in the old PDM perfect for Arden was the way to go. You know what's interesting here, here, I have three people in a row who I know are not old school diabetes people but been added a long time right people whose comments that I'll pay attention to when I see them roll by Jen, a big note a calibration, Shawn, personally, I would never use the G six without calibrating. And then the third person reads as we calibrate if readings are off by more than 20%. But it doesn't happen that often. These are three people whose opinion, I think are probably pretty good. And they said three different things.

Jennifer Smith, CDE 52:52
And they all do it differently. And I think it's also kind of as I commented earlier about mice a good number of my sensors, like just being done on day eight. I think it goes back to the the truth in that the sensor filament interacts with everybody's body system, body tissue, interstitial fluid, whatever you're going to call it a bit differently. I think that's the reason some sensor systems work beautifully for some people, and not so beautiful. For others. I've got friends who love their Medtronic sensors get really awesome accuracy finger stick CGM. It's always on they don't have any problems with their systems. I could not get that thing to work for me. For the life of me and I wore both my sensors. I wore Medtronic and Dexcom. And it just never want to work

Scott Benner 53:45
for as good. You know, here's another name that I Kristen who I know. And she says I've never calibrated I do not believe my blood. Here's why. I do not believe my blood glucose meter to be more accurate than my Dexcom. So she just doesn't have probably that she can confidence in her meter. And some people don't think about that. They're just like, yeah, I checked it. So the meter the meter is like God, you know, the meter said, so the meters right? Well, you know, some of those meters. If you've seen the testing, I brought it up recently on an episode. There's I think the last one was like 2018, right? And it kind of ranked them only like six meters even ranked in like I would use this if I was you. All the other ones were like don't buy this meter. Right. The variance was way off. Yeah, right. Well, okay, we're out of time, aren't we? Because we're also at the end of the list, and I only had you for an hour today. So I actually got down to the list. There's people's I'm sorry, I skipped some that obviously were repetitive. But yeah, like Jenny said in the middle. I think that what works for you is important that checking with a quality meter is important. And it seems that you know the consensus seems to be if you're going to calibrate make sure you're high hydrated at a stable blood sugar before exercise, no active insulin, that kind of stuff. So the thing has a chance to

Jennifer Smith, CDE 55:09
get a lead correctly from the beginning. Yeah.

Scott Benner 55:12
I wonder if we'll get yelled out about this? I don't think so. We were very clear. Yeah,

Jennifer Smith, CDE 55:17
I don't think I mean, it's not like we're saying, This is what you should definitely be doing. 100% to make. I mean, that's not this is not medical advice. This is just discussion.

Scott Benner 55:26
Jennifer, this is a work culture. Okay, if you say something out loud that somebody doesn't agree with. You're trying to ruin the world, don't you understand? All right. Listen, I want to wish you a lot of luck changing your light bulb. And I really wish I knew your husband, because I would go behind your back and tell him that you don't change.

Jennifer Smith, CDE 55:46
Like I will, he will laugh at me. He'll be like, Who do you see this little like thing on the side? This is very, like, pull it off. And so I'm like, scouring.

Scott Benner 55:54
Well, listen, I'm gonna help you for a little bit before you go. He's get up on a ladder and look around the ridge at the ceiling to see if there's little set screws that are holding the whole thing

Jennifer Smith, CDE 56:03
or not. There are no screws, there's nothing. So then it's

Scott Benner 56:07
got to be. Did you twist it for? I don't want you to twist it out of the ceiling.

Jennifer Smith, CDE 56:12
Yeah, I twisted the glass part of it, which is would be the next option. Because I've seen the glass bulbs that just twist off, right? This one is either really screwed in unbelievably tight, which I guess might be the case. Or maybe I'm just too worried to try to unscrew it or like, heavier because I don't want it to crack in my hand. Here are my

Scott Benner 56:32
two thoughts. When you're trying to turn it is the base the metal base turning with it? No. Okay. So maybe you have I don't think you have to turn the base. But what I am thinking is, is it possible that it's a reverse

Jennifer Smith, CDE 56:45
thread? Oh, counterclockwise?

Scott Benner 56:49
Do you have to turn it the other way opposite. I wish you had enough time I would like to make you go up right now and turn it and see if it comes off. But instead I will just wait for your text message later. And

Jennifer Smith, CDE 56:58
I will let you know whether I required help to change the light bulb or not.

Scott Benner 57:02
I 100% agree you shouldn't tell anybody about this. That's all. Yeah, all right. Well, thanks for doing this. I really appreciate it. Yeah,

Jennifer Smith, CDE 57:09
absolutely. Have a good weekend. Okay, bye.

Scott Benner 57:14
Hey, everybody, Jenny's gone. I'm still here. We're gonna do everybody's favorite podcast thing I'm gonna read to you for a second this is from dexcom.com. In their frequently asked questions. The question is, is my Dexcom sensor accurate heading Dexcom G six continuous glucose monitoring system reading and meter value. Whether you're new to Dexcom, or experience, review product instructions before using the Dexcom G six. Keep using your blood glucose meter to make treatment decisions until you know how Dexcom works for you. Your meter gives you one number if you test twice, using the same or even different meter, it gives you another number and your Dexcom G six gives you a third. What do you do with all those numbers? Next heading is the test. The test your doctor does is considered a more accurate glucose number than any products you use at home. Both meters and Dexcom G six are compared to that doctors test to measure accuracy in clinical studies. They aren't compared to each other. Because of this, the Dexcom G sex reading and meter value are unlikely to be exactly the same number, but they should be close. Compare the meter and your Dexcom G six to see how closely the numbers match each other. If your G six reading and meter value are within what we call the 20 rule, also known as the 20% 20 rule, they match closely. Here's the rule. To use the 20 rule follow the steps using the table below my gosh there's a Table Lookup your meter value in the green middle column. The left G six column shows the low range for G six reading that okay, you're gonna have to go look at this yourself. I'll put a link in the show notes for this 2020 rule goes on to talk about good fingerstick practices. When you're using your meter. Make sure your test strips are stored as directed and not expired. Your hands are clean for finger sticks. Wash your hands thoroughly with soap and water, not hand gel and dry them then test. There are times when the numbers temporarily don't match, but are likely to become closer over time. For example, the sensors first day. With newly inserted sensors the difference between your meter value and your G six reading may be greater. Generally the match gets closer over the first 24 hours. Glucose changes quickly. When your glucose is changing quickly. It is more difficult to compare numbers. The meter and Dexcom G six measure glucose from different sources. They are blood in interstitial fluid and blood glucose changes a little before interstitial fluid. The match gets closer and easier to compare. When your glucose stabilizes pressure on the sensor when something is pressing on your sensor it can affect 36 readings the match should get closer after the pressure is relieved. That of course is what people call a compression low. So everything they're saying here matches pretty much everything that we found talking to Jenny, my experiences and what everybody in the Facebook page was saying. To determine what to do watch a G six readings over several hours. If the readings are always higher or always lower than your meter values, and always outside of the 20 rule, consider calibrating. Also consider calibrating if your Dexcom G six and meter numbers don't match, and your expectations or symptoms fit the meter value, not the G six reading calibration. Calibrating your G six with your meter is never required, it can make the Dexcom G six more accurate or less accurate compared to lab results, but it should bring the G six reading closer to the meter. When calibrating make sure you enter the calibration within five minutes of taking the finger stick. You don't calibrate during a sensor error. If you like you can calculate the 20 rule on your own. The Dexcom G six reading must be within 20% of the meter value when the meter value is 80 MG DL or higher 20 MG dl of the meter value when the meter value is under 80. Please note that the information listed here is applicable to the Dexcom CGM user within the US only. I cannot just read you this link. Because it is it looks very maybe I can hold on one second. So it's dexcom.com forward slash FAQ s forward slash is dash my dash Dexcom dash sensor dash accurate. Like I said I'll put a link in the show notes huge thanks to the Contour Next One blood glucose meter for sponsoring this episode. Go to contour next one.com Ford slash juicebox To learn more, and thanks to touch by type one.org For being such a wonderful long term friend of the show. Check them out touched by type one.org. Of course if you'd like to get a Dexcom CGM dexcom.com forward slash juice box you can get a free no obligation demo of the Omni pod tubeless insulin pump my Omni pod.com forward slash juice box take the survey AT T one D exchange.org forward slash juice box guys ready to hear Jenny admit the not being able to do something that I think she's kind of embarrassed about and some other chitter chatter. If you're looking for bonus material, I got you covered.

Jennifer Smith, CDE 1:02:44
I'm fed children I've gotten them changed. I've wiped but I have washed my hands and then I picked my tomato isn't my peppers from my garden and

Scott Benner 1:02:56
it was how did you get up? Six o'clock. Oh, so last night. That was seven o'clock your time. Last night. Last night as Arden's pump was winding down. I was like it'll make it overnight. Then her CGM and her CGM men, right. And we changed our CGM around seven o'clock and it was done. It lasted the entire, you know, 10 days. It was working great right when it shut off. And we hit like a little bit of a bleeder I was like, ah, that'll probably be okay. So it comes on in two hours. And Arden's CGM starts are all exactly the same. It comes on, knows her blood sugar perfectly. And within an hour tells me she's low and she's not. And then we we coax it along and get it going, and it's fine. So this happens. Around midnight, I go to sleep. And at 2am Kelly wakes me up and she goes, Hey, I need help we changed Arden's pump, because her blood sugar was going up. And her CGM has lost that signal. And I was like, Okay, no problem. I'll take care, but you go back to sleep. And I did take care of a Jenny. And then I went back to sleep at 6am. I was up for four hours in the middle of the night. And no, and it just, it would come back and it would go away and it would come back and it would go away. But I'm I know it's gonna be all right. And if this would have happened in the middle of the day, I want to be clear that this doesn't happen often. Does it just happen this time at a really bad time? But since it did happen, I know what I want to talk about today.

Speaker 2 1:04:43
Oh, great. And while we're doing that, I'm going to actually I've got like I have so many chords.

Unknown Speaker 1:04:52
What was going on? What

Jennifer Smith, CDE 1:04:52
is the deal with chords?

Scott Benner 1:04:55
The room is cleaned up though it's different.

Jennifer Smith, CDE 1:04:57
Oh, oh because we are are putting in new floors. Oh, this room, no campus. This is the bigger of we put a new floors in our living room. They're like, we are purging our home of carpet.

Scott Benner 1:05:12
Okay, blah.

Jennifer Smith, CDE 1:05:16
So living room got done. Now we're moving on to the space that has been my office which interestingly has been, it's the bigger of the two like spare bedrooms, right? Okay. And so we're going to put new floors in here. And then we're going to put new floors in what is now the room that the boys technically share. Okay, we're gonna then transition rooms. I'm gonna take that room, which is actually the smaller they're gonna we're gonna move their stuff in this room and this is the bigger of soap.

Scott Benner 1:05:50
You're under. Well, listen, we your fun stuff. To me. I know there's nothing like being an adult is there? We just ordered a folding state floor for Arden's room. And she very Arden just picked this floor that wasn't very expensive. So we were like, okay, yeah, you can have she's like, Can I do this? And when she picked that one, we're like, yes, you can. And you absolutely can. But we're replacing we. It's funny, you said this we wanted to replace, we have hardwood through most of our house. So the kids bedrooms and this room, amen. is carpeted. And then our living room is carpeted. But everything else has Tyler or wood. And we wanted to make the living room, tile or wood or something. We weren't really sure what. Because the one one of the bonehead mistakes we made when we put the house together was we bought this carpeting and didn't realize and dog owners will know right away, you don't buy looped carpeting with a dog right. And we didn't know that our carpet cats or I think the over under on poles that I fixed in that carpet have to be in the 1000s you know, or sometimes the dog's leash or something gets caught on he runs away and just yanks out like six inches of carpet and I actually get back down on my hands knees with a hot glue gun and toothpicks and put each one back in again. Right.

Jennifer Smith, CDE 1:07:16
Hi, God, you have so much more time than me.

Scott Benner 1:07:18
Oh my god. The other option was the other option would have been to burn the house down. It was like right in the middle of the room. You know, like I was like we got to get out of here. It was just really bad. And so we can afford to put wood down or what we wanted to put down in there right now. So we just went out and bought like a really inexpensive piece of carpet and it's being delivered in a couple of days. I can't believe we're doing flooring at the same time. At same

Jennifer Smith, CDE 1:07:42
time. Yeah, I don't think I've ever seen the floor in that room. Usually there's like a nice couch behind you. And that's all I see besides like,

Scott Benner 1:07:51
yeah, well my son stole the couch, just so you know. So that's gone now. He's like, I'm gonna take this sofa into my room because and he's home forever. So we're like, Alright, he's gonna take the candles, you know? So he's got that. And I have all of Arden's junk in here because we're waiting for the flooring to be put in her room so it's a bit of a disaster. Anyway,

Jennifer Smith, CDE 1:08:12
but I was gonna say I'm gonna get yet another cord totally forgot to plug the cord for the computer like direct connect in so give me a sec yeah sure

Scott Benner 1:08:29
I make Jenny plug her I don't let her use Wi Fi while we're doing this. So she's dragging an Ethernet cable across the room.

Jennifer Smith, CDE 1:08:37
And I also realized that I have no clue how to change the lights.

Scott Benner 1:08:42
What do you want to change in there? What do you mean we want

Jennifer Smith, CDE 1:08:45
I want light bulbs in the ceiling died I cannot figure out how to get

Scott Benner 1:08:54
What are you talking about? Let me say

Jennifer Smith, CDE 1:08:57
I don't know how to get it off. I have no idea

Scott Benner 1:09:01
is there no screw in the middle of it?

Jennifer Smith, CDE 1:09:03
There's no screws I've tried to turn in the glass doesn't unscrew. I don't know what to do with still. I have a big ol like floor lamp in here now. So like actually have Why have you

Scott Benner 1:09:19
brought anyone else into? Try to figure it out?

Jennifer Smith, CDE 1:09:23
No. I should ask. I know I should ask my husband. Do

Scott Benner 1:09:28
you not want to tell your husband you can't figure out how to change the light bulbs. Right?

Jennifer Smith, CDE 1:09:34
Like I'm not this dumb. Like I don't know what the deal is. So

Scott Benner 1:09:37
you're not wrong. It's isn't glass. It's a dome right?

Jennifer Smith, CDE 1:09:42
And it's glass right so it's like the wrong move. Like I just I think I also need to get like a taller.

Scott Benner 1:09:48
Are you reaching this? Yeah,

Jennifer Smith, CDE 1:09:50
because I've got just the basic level, which this stool has worked fine for all of the other like ceiling things right? So why wouldn't it work for this

Scott Benner 1:09:59
long Has the light bulb in that light been working for you? This is the first time you tried to change it is

Jennifer Smith, CDE 1:10:05
we moved in. It'll be October 1 will be two years in this house. And we've not changed the light bulbs in this light since

Scott Benner 1:10:17
because that's good run.

Jennifer Smith, CDE 1:10:19
Right? Good lights, I guess you know, but I also don't get used that very that often. Because I'm really on this in this room during the daytime. Okay, and so unless it's really dark in here, I typically don't usually use them. But anyway, yeah, cool.

Scott Benner 1:10:39
All right, listen, let's try to bring your yes, your bring your microphone a little closer. Do you know sir, to me, is that better? Try again. Better. Yes. That's okay. There's the spot. So hopefully we've answered some of your questions today about how to calibrate or not calibrate your Dexcom G six and the other burning question. How many people does it take to change a light bulb in Jenny's house? As of now we know the answer to be more than one. If Jenny's involved in it's in her office. Thanks so much for listening to the Juicebox Podcast. Please take the time to share the show with a friend. And leave a wonderful five star review on Apple podcasts if you're so inclined. Thank you so much for listening to this episode of the Best of the Juicebox Podcast. I hope you understand better now the process of calibrating your Dexcom G six. And I also hope that you're interested in learning more about the Omni pod five, or the Omni pod dash? Don't forget to use my link Omni pod.com forward slash juicebox would you like to save 35% on this sweatshirt that I'm wearing here? Are these silky joggers? Am I rubbing my legs while I'm saying it? I'm not gonna tell you because it sounds creepy, but they're super soft, cozy earth.com Save 35% at checkout with the offer code juicebox. And of course, you can get 10% off your first month of therapy at better help.com forward slash juicebox. Just by going through that link. It's all you have to do. If you'd like to know more about better help, there's going to be a short explanation at the end of this episode. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. If you enjoyed this conversation and you're not in my private Facebook group, it's absolutely free. And I think you would love it Juicebox Podcast type one diabetes on Facebook private group 35,000 Plus members. That's over 35,000 members, tons of conversations, opinions, perspectives, and great conversation absolutely free. Go check it out. If you enjoy the Juicebox Podcast or this episode or any episode, please go into the audio app you're listening in and leave a five star rating and a thoughtful review that will help someone else to understand why you love the podcast. The podcast is sponsored today by better help. Better help is the world's largest therapy service and is 100% online. With better help, you can tap into a network of over 25,000 licensed and experienced therapists who can help you with a wide range of issues. betterhelp.com forward slash juicebox to get started, you just answer a few questions about your needs and preferences in therapy. That way BetterHelp can match you with the right therapist from their network. And when you use my link, you'll save 10% On your first month of therapy. You can message your therapist at any time and schedule live sessions when it's convenient for you. Talk to them however you feel comfortable text chat phone or video call. If your therapist isn't the right fit for any reason at all. You can switch to a new therapist at no additional charge. And the best part for me is that with better help you get the same professionalism and quality you expect from in office therapy. But with a therapist who is custom picked for you, and you're gonna get more scheduling flexibility, and a more affordable price. I myself have just begun using BetterHelp betterhelp.com forward slash juicebox that's better help h e l p.com. Forward slash juice box save 10% On your first month of therapy


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#881 Best of Juicebox: Crush it and Catch It

Scott Benner

Originally aired on April 7, 2021. Scott and Jenny talk about how to crush and catch a high BG.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 881 of the Juicebox Podcast.

Hello, and welcome again to the best of the Juicebox Podcast. Today we're going to revisit episode 463. It's a defining diabetes episode called crush it and catch it. As originally aired on April 7 2021. This episode is definitely a fan favorite. I don't think a day goes by where I don't see someone in the Facebook group say hey, I crushed it and caught it. While you're listening today, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. Are you a US resident who has type one or the caregiver of someone with type one, please go to T one D exchange.org. Forward slash juicebox. Join the registry complete the survey. When you complete that survey. You are helping type one diabetes research to move forward right from your sofa. You also might be helping out yourself and you're supporting the podcast T one D exchange.org. Forward slash juicebox.

This episode of the podcast is sponsored by cozy earth. Now you can get 35% off your entire order at cozy earth.com Just by using the offer code juicebox at checkout, I'm wearing cozy Earth joggers and a sweatshirt right now these joggers are like the best and our sheets are super duper super, super cool. And silky and soft. Also from cozy Earth. Cozy earth.com use the offer code juice box to save 35% The podcast is sponsored today by better help better help is the world's largest therapy service and is 100% online. With better help, you can tap into a network of over 25,000 licensed and experienced therapists who can help you with a wide range of issues. Better help.com forward slash juicebox. To get started, you just answer a few questions about your needs and preferences in therapy. That way BetterHelp can match you with the right therapist from their network. And when you use my link, you'll save 10% On your first month of therapy. You can message your therapist at any time and schedule live sessions when it's convenient for you. Talk to them however you feel comfortable text chat phone or video call. If your therapist isn't the right fit. For any reason at all. You can switch to a new therapist at no additional charge. And the best part for me is that with better help you get the same professionalism and quality you expect from in office therapy. But with a therapist who is custom picked for you, and you're gonna get more scheduling flexibility, and a more affordable price. I myself have just begun using better help. Better help.com forward slash juicebox that's better help h e l p.com. Forward slash juicebox. Save 10% On your first month of therapy. Hello friends and welcome to episode 463 of the Juicebox Podcast today, Jenny and I are going to define a diabetes term that I made up

don't tell the other episodes. But I quite like the defining diabetes series. What was once just in my head and idea of like, Oh, I'll tell people the definitions of words so they know the tools they're using and what they're supposed to do. But I've come to see these episodes is more than that as time has passed. I think they're their own special little. I don't know, I just like them. It's like a mini pro tip series defining diabetes. They're just good. And they're helpful. Actually, they're made even better with the presence of Jenny Smith, my friend and certified diabetes educator who helps me on these end the pro tip episodes. Today Jenny and I are going to define crush it and catch it. There's a little more to it actually, there's crush it, catch it and you'll find out in a second but I just like crush it and catch it. The rest of its like implied once you understand you'll see in a second. Please remember while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise please Always consult a physician before making any changes to your health care plan. We're becoming bold with insulin. Hey, new listeners. Did you know bold with insulin actually comes from the title of episode 11. I thought I would tell you that because now that the podcast is seven years old, it's possible you don't even know how this thing got started. This episode of The Juicebox Podcast is sponsored by the Contour Next One blood glucose meter. It's the meter my daughter uses. It is the most accurate meter I've ever held my hand. And it's absolutely lovely. Check it out at contour next one.com forward slash juicebox. You know what else? This show is sponsored today by the glucagon that my daughter carries, G voc hypo Penn, find out more at G voc glucagon.com. Forward slash juicebox. I have come to I've broken down the idea of how do I get a blood sugar back down into three simple words I crush it, catch it and start over. Okay, so if I see if I see a blood sugar that's high, and it's stuck, instead of messing with it, I crush it, catch it and start over. Now sometimes I crush it and it catches itself. And those are days when I'm like oh, I really did it. And then there are some days when I crush it so hard, it needs to be caught with some sort of fast acting glucose. This comes up a lot when I'm talking to people because I just feel like I feel like staring at high blood sugars is a bad idea. Now when I used to say this, people say oh, it's not good to bring your blood sugar down too quickly. And I know it isn't. But is it not a good idea when your blood sugar is high all the time to bring it down too quickly. But what about a person whose blood sugar is normally like 85 to 105 and it sits there most of the time, but then you get this big spike from something you messed up or did wrong or bad pump site or whatever? Is there any value in watching it and bringing it down slowly over four hours versus crush it catch it

Jennifer Smith, CDE 7:04
there when I'm glad you kind of brought it up. Because that was like the first thing on my mind to like spit out was it really does depend I mean, somebody who's typically sitting in a nice, beautiful, you know, glucose range that they're happy with. And now oh, you know, grandma's apple pie came along, and I thought I'd only eat one piece. And now I've eaten three and oh, by the Pre-Bolus that I you know all the things that go into a higher blood sugar that happens occasionally, the occasional high blood sugar that you do your little you know, crush it catch it kind of component. Is that detrimental? No, I mean, you're taking care of the high blood sugar, you're bringing it down, you're doing it quickly. I would say that the opposite of that though, you know, for a high blood sugar, that's, that's randomly high. And you're kind of worried about doing that and bringing it down so quickly is there is there trauma, the same way and just leaving it hanging high and come down slower, by just taking a small amount and gradually getting it down? I think they're both honestly about the same in terms of any potential like you know, back in, which I don't see there at all, you know, problems and you either take care of it on the back end or on the front end quick and it comes down. And now you don't have to do with the high blood sugar anymore. Or you end up with a high blood sugar for hours watching. It's like slowly come down. And you may not feel great during that lengthy time. But on the same if you crush it early, and it drops really fast. You also might feel the drop, too. So you know in either of those, I don't think that it's necessarily bad. The long term of consistently doing that, like if you are the roller coaster, and you're constantly crashing highs and on the back end catching them with a load of extra food. They're in something needs some adjustment, right?

Scott Benner 9:07
And so that phrase would not come into my mind if Arden was constantly Hi, I would think oh, there's so many other things that I don't understand. I am really talking about specifically when you just have this, like out of nowhere like right where did this come from? Because I think one of the problems with messing with it for hours is that that runs into another meal. And now you don't have any resolution of the carbs and the the insulin right like there's no like I found myself years ago always saying to my wife, look, we need to get this down, get it level, get this insulin out of her so we can start over again. Because if not you have all these other variables going on. You don't know which ones are impacting and then you go into another meal and it takes years to be able to just on the fly go okay, there's still some act of insulin but the food's gone. now so i'll Bolus this and I'll take away 10 carbs because I know there's some insulin left like you most people can't do that off the top of their head right? So I my my theory has always been get it down as fast as you can. Because the insulin you use to get it down is kind of gone after that, like it gets. I don't know if this is a technical term but it feels like it gets used up dealing with the carbs Does that make sense?

G voc hypo pan has no visible needle, and it's the first pre mixed auto injector of glucagon for very low blood sugar and adults and kids with diabetes ages two and above. Not only is G voc hypo pen simple to administer, but it's simple to learn more about, all you have to do is go to G voc glucagon.com. Forward slash juicebox. G voc shouldn't be used in patients with insulinoma or pheochromocytoma. Visit G voc glucagon.com/risk.

Are you or your child carrying around an old busted up nasty blood glucose meter? Are you not even certain if it's accurate? Does that sound like the situation you find yourself in because if it does, it would be very easy and possibly financially advantageous to check into the Contour Next One blood glucose meter. This is the meter My daughter has been carrying now for a couple of years. It is phenomenally accurate for us, I'm talking about a good old fashioned blood glucose meter that just works. It's got a bright light. So when you're using it at night, you can see what you're doing. The test strips allow for Second Chance testing, meaning you can hit that blood drop not quite enough and go back in and get more without messing up the accuracy of the test or wasting a strip. And it's possible that you could be eligible for a free meter. And you could just find that out right now. At contour next one.com forward slash juicebox. Alright, so go check out that G voc glucagon, the Contour Next One blood glucose meter. Even there's a link in that show notes there for Jenny. It's a lot going on there. You can find these links. Like I said in the show notes to the podcast player. We're at juicebox podcast.com. I don't know if this is a technical term, but it feels like it gets used up dealing with the carbs. Does that make sense?

Jennifer Smith, CDE 12:37
Yeah, I usually say it gets eaten up faster. Yeah, it's like there's so much sugar for it there when you've got a high blood sugar that all that insulin gets sort of used up faster. There's it's kind of like the same concept of a Pre-Bolus is you're getting the insulin action going now to hit what's coming and get it used up. And on the back end. If you've done it right. And you figured it, you should have a smooth landing.

Scott Benner 13:05
It's always it always appears in my mind like a fistfight that just goes to the death that just like when it's over, both fighters just drop over backwards and on their way down. They're like well done, and then they're they're just gone. They ever get back up again, you know? And, and you're right. That is how I talk about and how I think about Pre-Bolus thing, which is to put both people's aggression at the same time make the insulin working while the carbs are working. So that one's not not doing its job without the other one. Because how you get a higher low blood sugar. But so in a bigger idea. I hear it's exactly right, like so what do you do in that situation? Like, how does Jenny handle have a high blood sugar that she gets?

Jennifer Smith, CDE 13:47
She's like, Hey, I like your I like well, one, you know, with using the system that I use for managing. I don't typically deal with that unless I have a pump site that's gone bad and hasn't been dealt with obviously. And for some reason, I haven't paid attention to any alerts and alarms that are going off on my CGM. So there are lots of catching points that obviously I haven't I know a lot of people use similarly, but with high blood sugars, I do the crushing catch it kind of thing more than not think there's I don't want to sit high. I don't like sit and kind of like you with my day the way that it goes. I don't want to have to wait out a high to eat because often my meals are with my kids, and I don't. I don't want to sit there while they're like chowing down and I'm like Mommy's got to sit here.

Scott Benner 14:50
Kelly's not saying she feels that her kids will feel odd if she's not eating. She's saying she doesn't want to watch somebody eat and not

Jennifer Smith, CDE 14:57
be eating at the same time. That's the intro I meant to have a meal together.

Scott Benner 15:01
I think it's abundantly clear why you and I get along about talking about diabetes. So I was like it now for the alternate viewpoint. Here comes Jenny with exactly what I just said. Yeah, I just think that I think it leads to so much more success. Because that staring at highs is stress inducing, and like people are like, well, I don't know, I'll make myself low. And I get that, like, if you're hearing this episode, first, go back and listen to the Pro Tip series. Don't start with this. This is like ninja level, like, I already understand what's going on 1000 times over. And I've got a high blood sugar, you know, if you Oh, sorry, no, no, I was gonna say if you usually have high blood sugars all the time, your basil is wrong, you don't understand how to Pre-Bolus Like, all these other things are first not this. This is not step one.

Jennifer Smith, CDE 15:53
No, no. And I was also going to just sort of go back and say, you know, my, my day to day like crush, it is definitely much more the case. overnight. I mean, my husband will wake up to an alarm. But he is definitely much more the like, sleep through a train coming through the wall than I am now have being a mom and waking up to everything. So overnight, I can say because I am, I am my own manager. I don't have anybody catching or following or anything for me. So if there was a conservative time that I'm going to do less aggressive correction for a high, it's definitely going to be overnight. And it's usually if I've had a highlight that overnight, it's usually like, the pump site is bad, or it's gotten pulled out and like I've got this dangling pot on my body and I haven't obviously gotten insulin, and then it leads to well, how much insulin do I have left? So it's kind of a questionable, and I'm a lot more conservative. Sure, for my own self overnight. Because yeah,

Scott Benner 16:58
I would think that for an adult, it's different than for a caregiver for certain. And I don't want to give anybody the impression that I use, you know, 50% more insulin in the situations needs. And then I just give her like a filet mignon dinner at the end, like, although, I could go into how you can get out of a high and go into a meal by correcting the high end Pre-Bolus in the meal, even sometimes hours ahead of time, and then just introducing the food at the exact right time. Maybe that does fit in here. But we're not talking about that right now. So I don't I mean, I don't want anybody to think that I'm overdoing it over time, I've learned that, you know, I can be really aggressive here and maybe I'm gonna miss by eight carbs worth of insulin, right like just a little bit and you can kind of, you know, add a little bit in I there's an episode called Utah Gen, where I talk about how I, how I help the person over the phone, this is probably not something I should have recorded. But how I helped the person over the phone bring like a seven year olds budget or from 400 to 70 in like two hours. And it involved crushing it and then introducing a meal at the right time. And back kids blood sugar went like 76 I think if I'm remembering it just leveled right out, it was like that was one of my, my most happy moments in my life. Walk around my house with my head. So I was like I did it. And then she ruined it by feeding him. But that's not the point. Anyway, it's a great episode, but not what I was talking about. Alright, Jenny, I'm gonna stop putting his

Jennifer Smith, CDE 18:28
reference to it, though. I mean, in terms of like that introduction of the meal at the right time, I think when you said this is like ninja level. Yeah, I agree. Because over time you have an idea, you have a sense of how much to potentially crush it with. And where, with hindsight, you can tell where you're going to need to add something because it's you're not going to it's not going to catch it on its own. You're going to have to help with the catch.

Scott Benner 18:54
Yeah. So and if somebody's listening to this and thinking, oh, yeah, I try that all the time. And I always mess it up. I really genuinely think go listen to the pro tip episodes, because then you'll get through the little reasons why you mess that up. Because you know, I could go one of them is that people are constantly chasing blood sugar's, they're always like on the wrong timeline. I don't like no one other way to put it other than to say, insulin you use now is for later, but a better way to think of it is that insulin from before is affecting you now. And if you're trying to affect before, now, you're caught in a time travel movie and you're on the wrong end of it. So anyway, try the Pro Tip series. Okay, Jenny, thank you very, very much. Yeah, you're welcome.

A huge thank you to one of today's sponsors, G voc glucagon, find out more about Chivo Capo pen at G Vogue glucagon.com forward slash juicebox. You spell that? G VOKEGL. You see ag o n.com. Forward slash juice box. Have you been thinking about that Contour Next One blood sugar meter? Have you been thinking about that Contour Next One blood glucose meter since I brought it up earlier, this is your time, go check it out. Contour next one.com forward slash juice box, you can find links in the show notes to hold on a second, I'm gonna run out of music. You can find links in the show notes to today's sponsors to Jenny Smith, and all of the sponsors of the Juicebox Podcast right there. In your podcast player. There are show notes in your pocket, podcast podcast, there are show notes in your podcast player, you can click on them from there. And you know the links are there. Or I don't want to get too technical when I say the links are there, or you can find those links at juicebox podcast.com. Allow me to take this moment to thank you for listening to the Juicebox Podcast for sharing the show with other people. And for making last month March of 2021. The most popular the most downloaded month ever in the history of the podcast. I'm not giving away the numbers. But last month did by a multiplier better than the first year of the show. Is that not crazy? Anyway, I have you to thank. So thank you. I appreciate it. Again, when you share the show when you subscribe in a podcast player, when you tell somebody about it, when you leave a review, and you're like, oh my god, I love this podcast as a review, and you give like a really thoughtful reason why those reviews are very helpful. Mostly for listening. That's the best thing you can do for the show, listen and tell someone about it. I really appreciate this. I feel like I've gone on too long about this now, but there's no going back. And I don't feel like editing it out. So I'll see you soon with another episode of The Juicebox Podcast. I'm just gonna keep talking, you can leave if you want to. But some people don't know about the other episodes that I think would be really helpful to them. So I'm going to take a moment juicebox podcast.com is the website for the show. Everything you need is there, there's menus at the top. And you'll be able to find the diabetes pro tip episodes. And the defining diabetes episodes. Under one link is the link that says diabetes pro tip. If you can't remember that you can just go to diabetes pro tip.com, where I've also put those episodes. I know a lot of you find the show. And people tell you Oh, if you listen, this podcast, like your variability will get better and you're able to go down, you'll just have a better idea what you're doing. And everybody's like, why do you do that? I think it's by listening to the show. I think that listening gives you a firm understanding through conversations with many people who are parents of children with type one diabetes, or adults who have lived with diabetes for a long time. Just hearing the conversations, hearing ideas come up, things get spoken about, I find very helpful. It builds your kind of diabetes knowledge. But if you really just want to dig into management ideas, you are looking for the defining diabetes episodes, just like this one, and the diabetes pro tip episodes. So again, diabetes pro tip.com. They're also right there in your podcast player, the thing you're holding right now with your phone. The Pro Tips begin at episode 210. They do not run concurrently. So you have to find them. And I think I say I think but I'm looking so it seems disingenuous. I was buying time the defining diabetes episodes begin at episode 236. There are many of them actually. Probably number in the dozens. And I don't see any end to them as we define. You know, I don't even see them as like definitions. I started talking about this the beginning like it's not just like Bolus means this. It's Jenny and I, we define it but then we talk it through. And now you know what that tool is. It'd be like, I'm gonna be like if you came from another planet, and someone handed you a hammer and a pair of pliers and a screwdriver and told you to go put together a bed. You might not know what the hammer is for. You wouldn't even know what it was called. So if you were helping me and I said pass me the hammer you wouldn't know. So I like for you to know what a Bolus is what Basil is why hydration is important. What's an insulin deficit? is feet on the floor a thing? What is the fat and protein rise a compression low or rage Bolus? Like I want you to? I want you just to instinctively know this is a hammer. I know what a hammer does. And that way when you need the hammer, you won't hesitate to me that's what the The finding diabetes series is about and then while there is no doubt that I would love for you to listen straight through this podcast started first one and listen all the way through. I know not all of you are going to do that. If you did, you would glean everything that is inside of the pro tip episodes. Don't skip the pro tip episodes just listen to them straight through episode 210 diabetes pro tip newly diagnosed are starting over and they go on from there. If you're not an MDI, still listen to the MDI episode. Right if you're on MDI, still listen to the Pre-Bolus episode. If you're on MDI, listen to the insulin pumping episode. If you've never had to CGM in your life still listen to the mastering a CGM episode. Don't miss bumping and nudging the variables exercise like don't just skip one because you think oh, this isn't for me. Those are going to lay down a firm foundation around your diabetes management in my opinion. And they're free So why the hell not right. Okay, thanks so much. Now I'll really see you next time. Bye. Bye. Hit subscribe

thank you so much for listening to this episode of the Best of the Juicebox Podcast. I hope you enjoyed crush it and catch it. It is definitely something we use around here. Would you like to save 35% on this sweatshirt that I'm wearing here? Are these silky joggers? Am I rubbing my legs while I'm saying it? I'm not gonna tell you because it sounds creepy, but they're super soft, cozy earth.com Save 35% at checkout with the offer code juicebox. And of course you can get 10% off your first month of therapy@betterhelp.com forward slash juice box just by going through that link. It's all you have to do. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. If you enjoyed this conversation and you're not in my private Facebook group, it's absolutely free. And I think you would love it Juicebox Podcast type one diabetes on Facebook private group 35,000 Plus members. That's over 35,000 members, tons of conversations, opinions, perspectives, and great conversation absolutely free. Go check it out. If you enjoy the Juicebox Podcast or this episode or any episode, please go into the audio app you're listening in and leave a five star rating and a thoughtful review that will help someone else to understand why you love the podcast.


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#876 Best of Juicebox: Altered Minds

Scott Benner

Originally aired on May 28, 2021. Scott and Jenny talk about how high and low BGs impact your ability to think.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome to episode 876 of the Juicebox Podcast

Hello and welcome back to the best of the Juicebox Podcast. Today, we are revisiting episode 485 altered minds. This is an episode where Jenny Smith and I discuss how high and low blood sugars can impact a person. While you're listening today, please remember that nothing you hear that Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. Are you a US resident who has type one or the caregiver of someone with type one, please go to T one D exchange.org. Forward slash juicebox. Join the registry complete the survey. When you complete that survey. You are helping type one diabetes research to move forward right from your sofa. You also might be helping out yourself and you're supporting the podcast T one D exchange.org. Forward slash juicebox.

This episode of the podcast is sponsored by cozy earth. Now you can get 35% off your entire order at cozy earth.com Just by using the offer code juicebox at checkout, I'm wearing cozy Earth joggers and a sweatshirt right now these joggers are like the best and our sheets are super duper super, super cool. And silky and soft. Also from cozy Earth cozy earth.com use the offer code juice box to save 35% Hello and welcome to episode 485 of the Juicebox Podcast guest who's on the show today.

Today on the podcast, I'm joined by Jenny Smith. Jenny, of course, is from all the defining diabetes episodes, and the Pro Tip series. And today she's here to talk about how people can be altered in their in their minds when their blood sugars are high or low. Right. So if you're looking for an understanding of what high and low might make someone feel like or could make you feel like this is the episode for you. During this conversation, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. Were becoming bold with insulin.

Jenny holds a bachelor's degree in Human Nutrition and biology from the University of Wisconsin. She is a registered and licensed dietitian, a certified diabetes educator and a certified trainer I'm most makes and models of insulin pumps and continuous glucose monitors. One day when I grew up, I hope to be just like Jenny.

The T one D exchange needs 6000 people to join the registry. And I have to keep saying this to you until you do it so that he went to exchanges looking for T one D adults and T one D caregivers who are US residents. They want you to participate in a quick survey that can be completed in just a few minutes from your phone or computer after you finish the questions. And they are very simple. I completed the survey in about seven minutes. You may be contacted annually to update your information. And they may even ask you a couple more questions. But this is 100% Anonymous, it is completely HIPAA compliant, and it does not require you to ever visit a doctor or go to a remote site. See this is interesting. This is a way for you in just a few minutes to help other people living with type one diabetes. past participants have helped bring increased coverage for test trips. Medicare coverage for CGM, and changes in the ADA is guideline for pediatric a one C goals. These are important behind the scenes things that people with type one diabetes need, and you have a unique opportunity to help them. These are not deep probing personal questions. They're pretty simple basic surface diabetes stuff, but they just need the data. Help them AT T one D exchange.org, forward slash juicebox. And at the very least, if 6000 of you go right now, I don't have to say this again, do it for me. I'm kidding, do it for the other people living with type one diabetes. But I mean, if you want to think of me while you're doing it, it's fine. This one's weird. But I will say.

Jennifer Smith, CDE 5:22
I mean, it's it came from somebody

Scott Benner 5:24
came from somebody, but it's not from somebody. But But it made a lot of sense to me when they said it, and then I left it on my list for a long time. And every time I look at the list, I'm like, Yeah, we're gonna have to talk about that. I think so.

Jennifer Smith, CDE 5:38
Hopefully, I have something.

Scott Benner 5:41
So I'm posing this next question to you, Jenny. Because you have diabetes, and you would have, you would have a real feeling for what this is? Maybe? We'll see. We'll see. Hopefully, I think you will. So I hear this from either parents or spouses usually. And it's something we make light of in communities and joke about, like I've said before, to my daughter, you know, when she was little, I'm going to test your blood sugar. And if it's not high or low, you're in trouble. Right? You know, like, because you kind of can't, you can't tell, like, is somebody acting a certain way? Because they're altered? Or are they acting a certain way? Because they're, you know, right, a pain in the ass. So like, you know, which isn't, but that always makes me feel like what is the person with diabetes hearing when they're altered? And so that's what I want to understand. And when I'm we're gonna do both. But let's start with higher blood sugar. So I know there's no Mendoza line that you can point to perfectly. But I will say I've always said in the past that as Arden is active if her blood sugar starts to creep above 161 80, I could see her slow down, her reactions get slower, things like that. We know that people get cloudier. We've talked about on the podcast a million times as you get higher and higher. But what's it like to be in your head? When your blood sugar's higher? Like, like, what if your kids are acting up? Or your husband's being unreasonable? Or you have to make dinner? Like and like, what does that feel like to you?

Jennifer Smith, CDE 7:18
Yeah, I think it to me, it feels one, I'm just annoyed. Right? And it's not annoyance with them. It's annoyance for the number for whatever it is where it is, right. And it can be even worse, if it was like a bad site, right? That now, you know, like, fiddling with for a while to actually get it. And I think then it the mental piece of that then comes when you're trying to manage this number that you're not happy with. And somebody interrupts that train of thought and that interrupt by, they're not like doing it intentionally to ask you, you know, can we have applesauce for dinner mom, you know, like, it's just a piece in the mix. So I think mine is more like, it's just a mental struggle at that point. And I do also tend to, I get kind of headachy. Okay, not so much when I have lows, but more. So when I am higher, it's that like, mental, that foggy kind of piece. And it makes me feel headachy not the kind that's like a throbbing, but it's like that cloudy kind of headache that you get. And again, that's just an irritating factor in and of itself, too.

Scott Benner 8:40
So there's a mechanical portion of it where it is, you know, for whatever reason, either you, maybe you missed on a Bolus, or you said your site went wrong or something. So there's, there's a mechanical piece like I need to fix this thing, which becomes irritating as it would to any person like, like, if I walked into a doorframe, I'd be like, I cannot believe I just walked into a doorframe like that. So you've got that going on. And then you have the actual act of having to fix it. And then you're focused on that someone else comes in so this is still all mechanical like but then the headache happens. And that's not something like a like a like a warning light on your palm doesn't go off and say Jenny's got a headache now, right? So when a five year old comes at you, you you can't say to yourself, I'm I feel the pain in my head that I'm not even aware of yet. I'm going to react it you don't have like, that's not how thinking works. So then you're just level of irritation is, does it? Here's how I Here's one. Here's how my wife puts it. Around her period. She'll tell me I'm not being unreasonable. I just have less space for bullshit is how she puts

Jennifer Smith, CDE 9:52
it. That's really great.

Scott Benner 9:56
I don't I think she's covering for herself but I understand Have the intent of what she's saying. So there's a, there's a ceiling in people before they get upset, right. And there's all kinds of, of outside irritants that can limit that ceiling. But just your blood sugar being higher physically, can take away from your ability to, to abide both, basically, I guess, correct.

Jennifer Smith, CDE 10:21
And, you know, from my standpoint to, you know, with the work that I do, and all of the data management that I do and interpreting things for people, I mean, the majority of my management is just because they want to be healthy, right? But the other piece of it is, it also leads into my work. Can I get worked on really well, if I'm sitting really high, or if I'm sitting really low, my brain isn't functioning well on either level. So that management piece is always also there to benefit. I'm not typing out a message that's like, you know, I don't know why you're blessed.

Scott Benner 11:02
Mary, why don't you just figure it out yourself? I paid this lady helped me with my blood sugar. And she yelled at me. Yeah, that wouldn't be great. No, but I want people to understand that whether and I think they do. But if I do, I think they do understand that a higher blood sugar could be an issue. But the problem is, again, that you don't walk around as a person with diabetes with your blood sugar across your forehead. So when I come up to you, you're just Jenny to me. I don't know if your blood sugar's to 20. And you have a headache. And so how, what I guess what should those people be looking for? So that they can back up and go, Oh, you know what, this could be that because even if I understand that your budget, say I come up to you, you react oddly. And I immediately understand that your blood sugar that's high. If I say to you, oh, your blood sugar is high. I'm sorry. That's just gonna make it worse. Right? That's the, that's the diabetes equivalent of me saying, Oh, you have your period. I won't bring up the car payment right now. Right. Okay. Okay. Yeah,

Jennifer Smith, CDE 12:02
Yeah, kinda. And I think it does bring up a good. A good point, though, especially for I think this goes more for adults who have a spouse or a significant other or partner or whatever. Because like, Nathan, he follows he's got Dexcom follow, you know, if Scott my stuff, but I mean, he doesn't keep it open and follow me all day, he's got the alarm set, and all of that for like, high and low. But other than that, I mean, he just, he likes me alone, honestly, which I'm very thankful for, I'd say to counting carbs for me if he's like done dinner or something, you know, which is awesome. But in that regard, I think it also means that as the person with diabetes, you kind of also have to share more at times. Because as I do more often with my kids, I share with them, you know, this is what I feel like right now and go color in your coloring book for like 10 minutes while Mommy changes her bad pod, or whatever it is? No, but I think it means that you have to express a little bit in order to decrease the chance that somebody's going to interpret your reaction to something in the wrong way. Because certainly, I mean, that's happened in the married a long time. And there's definitely been like blood sugar reasons for reactions that didn't really come out as response that I meant it to come out kind of sounding like. So I think sometimes you have to be open enough to be able to say, hey, you know, I need this, like, 15 minutes to manage around this, come back and like, ask me in a bit,

Scott Benner 13:42
but that could come out as I wish I would have dated your brother instead. There you go. So I have a little context around this, which I've mentioned often on the podcast over like the last year or so. And it's just that my, my iron level got really low. And I completely understand what you're saying, like saying words, not having the intention behind them that the words have and also not being able to see that it's happening. Like that's the interesting thing, like when you're saying something to somebody, even if it's a tone, you know, just the wrong tone. And you don't know what's the wrong tone while you're saying it. Like when you're being sarcastic with somebody when you're you know, when you're in an argument you're like, I'm gonna ramp this up right now, you're aware you're going to do like, I'm going to say something now that's going to make you upset, but it's happening. And not only do you not know what's happening, but you don't think it's happening. And that's the that's the real fascinating part like is that you're doing this it feels like it's you're doing it but it's just that there's a level of a, a trace element or something in your body. For me it was iron, you know, for you, it's going to be not enough insulin, and you're just you're not yourself and it's It's tough because you're asking you're getting you're an adult who's Ultra aware of their blood sugar's like you really like you're, you know, you do an amazing job for yourself. So maybe you can see it. We're all trying, right one way or the other. But my point is that maybe you've been able to teach yourself over time to go my numbers up, like I won't get involved in an important conversation right now, where I'll send my kids off the collar for a second so that I don't tell them I wish I didn't have children. But but you know, when your kids 16, or you're 24, and you've had diabetes for a year and a half, and you're at work, like you don't, you're not gonna see that common like that.

Jennifer Smith, CDE 15:42
No. And mine's more so in terms of like, like, spit out of things that I don't even know that I've like said the way that I've said is more so even when I'm low,

Scott Benner 15:53
honestly, let's switch to that idea. Now.

Jennifer Smith, CDE 15:57
It's, there's much more like the it's like a fragment of like thought in your brain. You're trying to manage how you're feeling with this low while you're probably waiting for the low to not be low anymore. And in that come the things of life. I mean, unless you're a single person and not interacting with kids or adults or other people around you. There's always someone you're interacting with. And that interaction, then in that time period where your brain isn't really firing all. Wait, it doesn't you don't interpret it coming out in sort of the jagged way that it does. And then aftermath is often Well, I'm really sorry, or, you know, I didn't mean that, or, I've Well, I felt like crap. Does he bother to me?

Scott Benner 16:49
Does it feel like that afterwards, like after it's over, and you're okay. Do you have the guilt that you did something wrong? Because it's not true? Right, you know,

Jennifer Smith, CDE 17:02
right. I mean, only in the scenario that, you know, we may have been potentially discussing something or whatnot. And that was the case during that discussion. Yeah. I mean, that obviously, every time by any means, do I feel bad about, you know, yeah. But yeah, it's a hard, it's a hard thing. And sometimes even with lows, I think that I will have responded to something. And it's been in my head that I've actually and my husband will be like, Did you hear what I asked you? And I'll be like, I told you, whatever. And he's like, No, it really didn't say it out loud. It just like that muddiness that I've, I think commented about before when I feel like I'm like, sort of like

Scott Benner 17:50
that's the real low there's a slide in there there in the beginning, right and numbers wise, doesn't really matter. But you know, if you're the way I think of it with Arden is maybe between I would say it's 65. Artem maintains herself. Hey, Dad, I feel dizzy. You know, like, she's just like that. She's a little kind of jokey about it right there. It's almost like you could be like, Hey, let's not do anything and see if you die. And she'd be like, okay.

Jennifer Smith, CDE 18:16
Yeah, that level, but it's Yeah, right. She's

Scott Benner 18:19
elated for some reason, right there, okay. And then it goes down, and her energy drops away. But if you were to catch her there, if somehow she got past the elated part into that part, and that's where you first intersected her, she'd be snappy, like, Loreal, short and nasty, right? And then I think after the nasty is what you were just talking about where the last, the last fragments or thoughts are, right? Yeah. Okay. It's almost like a and then there's, you know, falling over and not being able to help yourself. But as it's happening, are you able to consciously think, hey, my brain is trying to shut off and I'm the only one who's going to stop it. Right? Or does it turn into just a physical like, eat something feeling?

Jennifer Smith, CDE 19:06
I think it's probably a little bit of both. I mean, in my, I can't remember a specific time. Soon after my first was born, we had gone I think it was too cold to actually and I was standing in, and I was nursing IVs at that point. So all the fluxes that can kind of come with blood sugar and whatnot, mostly like lows and my husband had gone off looking for something in like the men's department and I was standing like, in the toy department. We were looking for something specific for our little guy. And I can remember feeling low, and like, you can determine like those dropping lows. I was dropping, and so I sat down with my baby on the floor. And I get out you know, my glucose tablets and I'm eating my glucose tablets and I I had my husband found me. I mean, I was fine. But I was sitting there just like waiting for the load to fix itself, because I knew that I had taken care of it. But in that I had also gotten my phone out. And I was texting him to come to the kids department, right? Because I was low, only I never hit send. Okay, I was just like, that's kind of that like, broken, like thought kind of that can happen.

Scott Benner 20:28
Wow. Do you ever get in a moment like that? Is? Are you cognizant enough to think don't fall forward on the baby? Like, do you have like, do you have those feelings? Like all

Jennifer Smith, CDE 20:38
the reason that I sat down? I mean, from my back thought to what I was doing, I would have thought, you know, I need to sit down. I've got a baby who clearly can't stand on his own yet, you know, I mean, it was I think he was probably like six months old or something. And it's a sit down, treat your low blood sugar. I mean, I've always been able to treat so I've never had an issue with not being able to help myself. Outside of like, when I was a teen with my parents. So yeah, but it's, it is I mean, in those instances, sometimes there's not enough to like even like, be angry, you just can't even communicate quite right.

Scott Benner 21:15
It's interesting. It's super interesting to me the way that first of all, the way your body handles a falling blood sugar, it's, it's when you start losing faculties, you're it's your body shutting down, it's basically services. It's like, oh, we don't need that one, like and it just, it just, it has this finite amount of sugar in your blood. And its goal is to keep your brain running. Correct, right. And so it starts shutting me out, stop, right, stop sending sugar to this idea. And this idea. So you're like, going down, and it's your body going like, it really is, it's like, let's try to see how long we can stay alive until something intervenes. But you describe the the actual actions you take very similarly. Like, alright, like, Okay, I'm not okay, I'll sit down, I'll start taking these things. That's more important than telling someone right now, it's important to tell, like you're doing the same thing. You're making these like,

Jennifer Smith, CDE 22:11
it's just that you're not like, consciously. It's almost like your brain like those, like files in the back that were like, do this now. They take over, even though you're not really like, consciously aware that you're like sitting down and like drinking your juice box, or whatever it is, you do it because it's a habit. And you know that that's what you need to do with the symptom?

Scott Benner 22:36
Would you looking back on a scenario like that, if that if the Jeeva hypo pen existed, then would you being with your baby, would that have been enough for you to be like, I'm not going to take tablets, I'm going to hit myself with glucagon. Or no, you still would have handled it that way.

Jennifer Smith, CDE 22:54
You know, possibly, with, with what I remember about that being such a quick drop in my blood sugar, I mean, it's not like we're running around the story. It's just like, I'd probably nurse before we went in the store to keep him happy. And like, there was enough to feed into the store. But I mean, maybe I mean, I certainly have got like an extra back cine that I typically take out, especially when we're like traipsing around the neighborhood to the parks, and whatever. I mean, my eight year old knows about it. So possibly, I might have done that.

Scott Benner 23:33
Just because me with the back shimmy, and like the G vote now being like ready to go. But prior to that I only ever thought of glucagon is like, you passed out and somebody came upon you and gave it to you. Like that's how it felt. But now all of a sudden, like it's there, and it's easy to use. And like, I wondered about that, like how you would think about it?

Jennifer Smith, CDE 23:53
Yeah, yeah, you could, I mean, it's certainly not a bad thought by any means. Especially I've worked with a couple of women post well through pregnancy and then postpartum who have had spouses who've been military. And so they have after a certain amount of time, postpartum, you know, their spouse goes back, you know, might be deployed again, someplace completely away from where they are, they're pretty much on their own. With a baby, they might have the support of friends or family coming in once in a while, but that's not at two o'clock in the morning. So you know, in a case like that, where you're dropping a really low and you're really worried about it not sure. That's what a product like that is therefore it's also the benefit potentially, of, you know, like mini dosing that age old red Lily glucagon.

Scott Benner 24:42
So, here's the question then, because I came at this from the idea of the people who are going to interact with a person who's either too high or too low. I have to be honest, when Arden in the past has been too low, where she's refusing, I just go with like a forceful Because I think like, I tried talking or like, you know, I've gone with the Come on sweetie drink it, it's really important like that stuff that doesn't go it's almost like you're not talking to the complete her know, you know and so you just you make these declarative forceful statements, drink the juice, drink it, drink the juice, drink the juice drinks, and I'm talking like I remember I know people say to me all the time, you know, you must know what it's like to raise a little kid with diabetes back before all the technology and I don't talk about it very much, but it's really bad. And so you know, like back before CGM and all that. There's, it's three o'clock in the morning. You're there with a six year old and you're like, alright, and drink the juice, like drink the goddamn juice right now, you know, and because there also was no CGM, like at some point. So what's happening? Yeah, I'm like, you know, and you don't, you're not yelling, you're gonna die. But you're, it's how it feels in your head when you're talking to them. And I think that's much easier to figure out with a low blood sugar, right? Like, that's obvious to people, but it's the, it's always the high ones that make me I feel badly, like, I feel badly when I hear I've used this example over and over again, but it sticks with me, like right in the center of my heart so much that a woman found the podcast, it helped her daughter. And when she sent me a note, months later, to thank me, she said, I really just thought my daughter was a bitch her words, and that we weren't going to get along for our whole life. And it turns out, my daughter is a lovely person. And I didn't know because her blood sugar was always high. And that makes me want to cry. And, you know, and, and the, the idea that that could happen, either at the beginning, right? Like, you'll hear people say, Oh, I didn't realize, you know, that this stuff happened, or I helped somebody recently, with a baby, a young kid who has autism. And at the end of talking, I said, Hey, you might see a difference in, you know, just how to validate personality and stuff. And that person was so sure that that wasn't going to happen. And then three days later said to me, you know, he is happier. And I said, Yeah, like you don't, you don't know. And then that's a sad situation, because then the the poor kid couldn't tell, you know, could isn't verbal to begin with very much. And but I just think about that for everybody else, if you're running around with blood sugars that are 170, all the time your body gets used to it. So physically, you think you're okay, but you're not like you're not the person, you were going to be right without diabetes, you know. And so there's just what

Jennifer Smith, CDE 27:40
even from a mental standpoint to even from performance, right? You may not be, you may not be putting out everything you possibly could putting things together, whether it's in school, or college or job or whatever. Because your brain is really not working at the level of glucose that is healthy for it to work at

Scott Benner 28:06
this conversation is at the core, why I initially years ago, brusque, so hard at the idea of better high than low. I was like, I don't think that's right. You know, you know, like, I think that that that does not seem right to me, I've known people who through a lifetime, we're not who they were supposed to be, I just know it. And if you lose your you know, it's it. Every day you lose is gone, every hour you lose is gone. And days turn into months that turn into years. And before you know what people just think you're a prick. And you know, and that's just not,

Jennifer Smith, CDE 28:40
you may not be at all. Yeah, maybe with

Scott Benner 28:43
another two units of basil all day long, you would have been an absolutely delightful person and that, and, and then I think about the people on the other side who have to deal with you who love you. And then think, Oh, I love a guy who's just a jerk, but maybe isn't, or you know, vice versa, or your kids or I don't know, I just I want people to be very aware that outside of a normal range, that the lack of or addition of sugar in your blood is having a real big impact on your personality and your ability to live and make decisions and everything right?

Jennifer Smith, CDE 29:16
I mean, I've even had parents who who've asked me, you know, how do you? How do you discipline your child with diabetes? When you're like, do you always refer back to the blood sugar to begin with? Or, you know, do you just discipline them as if they don't have diabetes? And quite honestly, think if they require discipline, because they threw the stone through the front window? Because they were aiming and wanted to do it? I mean, really, unless their blood sugar's like 12 really low or really high. Obviously, that was that was like a decision on their part. They deserve to be punished right away that

Scott Benner 29:56
if your blood sugar's 150, and you're breaking windows You're just a gift. Yeah, but, but But I mean, but if your blood sugar has been to 20 for your whole life, and you can't do well in math, it might not be because you're not good at math. Right? And you got to make that decision. Yeah, I mean, listen, I There are times, there's been one or two times that Arden has been so low, that she has said horrible things to me. And I just, I bear down and I think that's the blood sugar, and I just let it go. But you really have to be ready for it like because it's hard not to react. You know, I mean, Jenny, I'll bleep this out later. But when an eight year old calls you and you're like, Whoa, hold on. Please drink the juice. I wasn't looking for this I didn't recognize. And you know what, I've heard adults talk about it too, in a marriage situation where one person is physically stronger than the other person. And you know, can get low and then get, you know, violent, like, not on purpose, right. And now you're in a much different situation. Yeah,

Jennifer Smith, CDE 31:09
I actually had that when I was working in DC, a couple, an older couple had actually come in to our diabetes clinic. And the man was complaining, he's like, sometimes I'm scared. I think she had gone to the bathroom or something. And then we were just chatting. And I think it was on the topic of like, hypose. And he brought up he's like, sometimes I'm kind of scared of her. He's like, one day she threw a coffee cup. Okay, well, that wasn't really your wife. That was a low blood sugar.

Scott Benner 31:42
So I will tell you for blood sugars every 95 and she throws something at you. I don't think she likes you.

Jennifer Smith, CDE 31:48
Then there was something you did really nasty to her. So

Scott Benner 31:51
that's okay. I appreciate you talking about that was really good.

Could you just not talk to Jenny every day, I know I could. I wish I could actually just doesn't work out like that. Anyway, Jenny does this for a living it integrated diabetes.com. And you can check her out there. There's a link in the show notes. What comes next is about the T one D exchange. If you heard it in the last episode with Johnny, and you haven't done it, let's get to it. But if you haven't, the T one D exchange needs your help. And the help they need is super simple to give. You just go to T one D exchange.org. Forward slash juicebox. That's my link, use that link. And then when you get there, click on Join our registering now. And after that you complete this simple, quick survey. It's for US residents only. But it's so easy. Like right now, if you did it right now look at your watch. Or you probably don't have the watch to pick up your phone, touch the face of it. If you did it right now, you'd be done in less than 10 minutes. It took me three hours to bring you this episode. And this is all I'm asking in return. T one D exchange.org. Forward slash juicebox. I mean, seriously, I had to book Jenny, record the thing. Edit it. I mean, you notice how there's no like pops and clicks and noises and nothing distracting while you're listening. You're welcome. That was me. Scott. click click click with the mouse. They fix the whole thing for you. hours it took like you're just like, oh, it was a quick 25 minute episode. It was nice. God said insulins important. Bah, bah, no, no, there's more than that. It's deep. It's deep. It's building a narrative in your life about type one diabetes, giving you the tools and the access to information for the free. And all I ask is that you go to T one D exchange.org. Forward slash juicebox. I only need 6000 of you to do it. I mean, there were hundreds of 1000s of downloads last month. I just need six of you. And I'm saying of the hundreds of 1000s of downloads. I need 6000 I'm tired of saying it too. I know you're tired of hearing it. I'm tired of saying it. But I mean at some point one of us has got to pick up the mantle and do their part. I can only do this I filled out the survey is easy. Alright, I'm gonna stop I apologize. That was I that was too much. Too much. I should just say T one D exchange.org. Forward slash juicebox. You need to be a US resident who has type one or is the caregiver of someone with type one. Please go fill it out if you have the chance. I mean that's that's how I should say it. But I mean, come on. This podcast is amazing. And it's free. Free and what do I say to you? You know if you want to try out an omni pod, go to omnipod.com Ford slash juice box I say if you want to check out a Dexcom go to dexcom.com forward slash use box I say you want to get a great meter contour next.com forward slash juice box I say hey, my daughter's got this G voc hypo pen you should check it out. That's it. I mean, you don't have to check it out. I'm not telling you to buy an AMI. But it's not like if you don't buy an AMI pod, you're not allowed to listen anymore. I'm just saying if you're going to go check it out, but this T one D exchange thing. I mean, you're on the internet constantly. I see the people in my life. I know you don't put the phone down. And I'm not judging you. I'm just saying why you're doing it. You don't I mean, P one, D exchange.org. Forward slash juicebox. Help a guy out a little bit. Don't make me beg you. It's embarrassing. I'll tell you what, if the T one D exchange contacts me at the end of the month, next month at the end of June and says we've added 1000 new people to the registry. Thanks to you. If they say that, what will I do? I will do an online talk about using insulin. Once a week, in July, once a week. Okay, I'll come on. I'll do it on Zoom. It'll be free, obviously, because you helped me out with the D one D exchange thing. And I will answer everyone's questions as long as I can. If we reach 1000. Now if we reach 1500, I'll get Jenny on one of those calls. If you do 2000 I'll do the call. Right? Every day every what I say every week in July. Jenny wants and what else will I do? I'll do something else. That's cool. I don't know what yet, but trust me, I'll come through T one D exchange.org. Forward slash juicebox. Use the link complete the survey. That's it

I hope you enjoyed this best of episode altered minds. It's a personal favorite of mine. Would you like to save 35% on this sweatshirt that I'm wearing here? Are these silky joggers? Am I rubbing my legs while I'm saying it? I'm not gonna tell you because it sounds creepy, but they're super soft, cozy earth.com Save 35% at checkout with the offer code juice box. And of course you can get 10% off your first month of therapy@betterhelp.com forward slash juice box just by going through that link. It's all you have to do. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. If you enjoyed this conversation and you're not in my private Facebook group, it's absolutely free and I think you would love it Juicebox Podcast type one diabetes on Facebook private group 35,000 Plus members. That's over 35,000 members, tons of conversations, opinions, perspectives, and great conversation absolutely free. Go check it out.


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