#927 Omnipod 5 is a Great Teammate
Carries child has type 1 diabetes and she is here to talk about Omnipod 5.
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Scott Benner 0:00
Hello friends, and welcome to episode 927 of the Juicebox Podcast.
Today I'm going to be speaking with Carrie. She's the mother of a child with type one diabetes, who is using Omni pod five and we're going to talk all about it. While you're listening. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin. Are you looking for super comfy sheets, joggers and towels, check out cozy earth.com and use the offer code juice box at checkout to save 35% off your entire order. If you want to take the same green drink that I do every morning, ag one from athletic greens, use my link athletic greens.com forward slash juice box you will get five free travel packs and a year supply of vitamin D with your first order. And don't forget if you're looking for those diabetes pro tip episodes, they begin at episode 210 In your podcast player, if you're having trouble finding them, check out juicebox podcast.com or the feature tab in the private Facebook group Juicebox Podcast type one diabetes
this show is sponsored today by the glucagon that my daughter carries G voc hypo Penn Find out more at G voc glucagon.com. Forward slash Juicebox Podcast is sponsored today by better help better help is the world's largest therapy service and is 100% online. With better help you can tap into a network of over 25,000 licensed and experienced therapist who can help you with a wide range of issues. Better help.com forward slash juicebox. To get started, you just answer a few questions about your needs and preferences in therapy that way better help can match you with the right therapist from their network. And when you use my link, you'll save 10% On your first month of therapy.
Carrie 2:19
My name is Carrie. I'm the mother of a six year old type one boy named Danny.
Scott Benner 2:26
Danny is six. How long has he had type one.
Carrie 2:30
We just had our one year on October 23 diagnosis five he was diagnosed when he was five.
Scott Benner 2:36
And what I what I will do here to try to get around my poor pronunciation is I write down the word carry with a why like carry the weight
Carrie 2:46
as opposed to carry Fisher
Scott Benner 2:49
or no as opposed to like my I might hit the are too hard. And say carry if I'm not careful. You just I just looked at my brain doesn't work around words that well. So this is what I have to do. are you pressuring me already? I don't I don't do this. It's Friday, you know? Okay, so tell me a little bit about Danny's diagnosis. He's a year ago. Do you have any other type one in your family autoimmune? Was there any reason to think this was gonna happen?
Carrie 3:24
Me and stuff on my husband's side not with my husband.
Scott Benner 3:29
There was I thought the result pregnant pause but you were just gone for a second. So can you start off?
Carrie 3:35
Sure. So no diabetes in our family. My husband's side has some non type one autoimmune stuff. Hashimotos celiacs lupus, but nothing. I mean, this was not on our radar, like not even a little bit. Right. So this
Scott Benner 3:54
is your husband's fault. I got all my husband's fault. Yeah. What else does he do wrong?
Carrie 4:01
We're gonna have to do a whole nother hour on that.
Scott Benner 4:04
All right, well, it's not let's pin the poor guy down now. So this is not something you're not sitting around thinking like, Oh, everybody in our family gets type one. So this is definitely gonna happen. So then how do you figure it out?
Carrie 4:17
So we noticed he was paying a lot. And we noticed it mostly at night. We both work full time. He's at school all day. We didn't have a lot of observational touchpoints during the day. But at night it was just he was soaking through the bed kind of multiple times a night but he was he was otherwise totally normal, fine and healthy. Because it was the end of October. We know people on Facebook and such that have type one in their families and they were raising money for JDRF which the walk in our area happens at the at the end of October and I had donated and sort of the social media algorithms. Were putting diabetes stuff on my phone as I was like scrolling through. And about five days after we noticed he was peeing a lot. I texted my husband and I was like, you don't think he's diabetic or something, do you? Because Facebook does, right? Because I've now diagnosed him. And my husband texted back, and he's like, I don't know, is, is peeing a diabetic thing. And I was like, well, apparently. And it kind of got, we're not once we focused on it, we got increasingly more concerned. And the next day, I reached out to one of these acquaintances that has a has a son with type one, and asked her if she would test his blood sugar.
Scott Benner 5:46
Well, that's how you figure it out. So the algorithm, the Facebook algorithm finally did something, right. Correct. It just kept so so seriously, like, the the idea of diabetes just kind of get kept being foisted on you by an algorithm? And that, that that really made you think about it.
Carrie 6:03
Yeah, I mean, it was late at night, he was in the other room changing Danny sheets and getting him back to bed for like, you know, what felt like the millionth time that we? And also I should say, I mean, we have, we have three little boys. So there's lots of reasons that one of my kids could be peeing a lot or peeing a lot at night. I mean, the weather was changing, it was getting cold, or, you know, you sort of rationalize it. 100 different ways.
Scott Benner 6:27
You know, how people pee the bed when it's cold out? Little boys? Do they really? Yeah.
Carrie 6:37
Like when, like when the air conditioning is on, like, there's definitely an uptick in our house and like nighttime accidents, for sure. I'm gonna
Scott Benner 6:44
say that's because those kids don't want to get out of bed and get cold in the bathroom. And they're just, you know, it'd be easier. This piece right here. Yeah.
Carrie 6:54
Yeah. So, so we, we suspected it, honestly, I thought it was going to be like, fingerprick rule it out. I didn't seriously think he had diabetes. They, you know, our friend tested him on there. They have a contour. They tested him. And they saw the reading as high which of course, I didn't know what that meant. And they just looked at me and they said, You need to go to the emergency room tonight. And I said, Well, you know, our doctors open on Sunday, let's just be you know, I'm sure it's okay. He seems fine. And they were like, no, no, now, like, leave your other children and go
Scott Benner 7:33
abandoned the other kids. Just go? Did they explain DK to you.
Carrie 7:39
So she did not explain DK to me. She said to me, when you get to the emergency room, tell them you think he's in DKA. And you will cut the line.
Scott Benner 7:48
Okay. And that works? Well, finally, just the worst way to get the front of the line you don't want to be in? Alright. Can I ask for a second? Have you and your friend never gone back over that moment? Was it hard for them to tell you that?
Carrie 8:04
Um, we haven't talked about I mean, that at the time, she was, you know, the mother of another kid in the class of one of my other kids, she we didn't know each other. Well, we've become obviously much closer over the year she has given us you know, some some wonderful advice and things like that. But we we haven't really talked about it other than just sort of how crazy the world works sometimes. Right that, you know, she she had been posting I donated we we connected like I thought to call her it all just sort of, you know, the universe does funny things sometimes. So
Scott Benner 8:44
sucks. Doesn't it be an adult? It's all I could think when you were talking about texting with your husband. Like, none of us are like 20 years old at a concert and thinking like, you know what'll probably happen one day, I'll probably be texting a man I haven't met yet who will be in the other room of my house, telling him how one of our children probably has diabetes. It sucks like that? Yeah. Yes.
Carrie 9:05
Being an adult sucks. Being an adult with a kid who has type one has sucked more than I thought being an adult could be.
Scott Benner 9:14
Well, I agree. I'm right there with you. Okay, so you get to the hospital D cut the line.
Carrie 9:21
We went in pretty quickly. You know, my son at that point, was absolutely hysterical. I mean, from his perspective, he was basically pulled off a little league field and someone stuck a needle in his finger and now we're at the hospital and he was screaming his head off. Screaming at the nurses, you're not going to take my blood, you're not taking my blood and the nurse looked at me she's like, you know, we're gonna take his blood, right? I was like, I know it's okay. And so they they fingerprint him in the ER and it was like 663 or something like that. And right then we were, you know, moved into the back room. Men and kind of off to the races with a diagnosis.
Scott Benner 10:03
What position does he play? He's six. Oh, they just shut him out on the field
Carrie 10:09
right there like right side or left side close or far. Do you want to
Scott Benner 10:13
run far this time this evening? Or do you want to run a little bit? All right,
Carrie 10:16
I think I think they have like pitchers helpers, the position that everyone wants to be
Scott Benner 10:21
standing next to the coach. Yeah, exactly. That's what kids want to do. They want to be the pitchers helper.
Carrie 10:27
Well, because that's like the kids can't really hit the ball. So straight up the middle kind of ball
Scott Benner 10:33
goes. Yeah. So your kids suck. i My kids were great when they were just kidding. That's exactly what happens to it's like the was T
Carrie 10:44
ball. Like they weren't even there wasn't even any velocity on the pitch to help them.
Scott Benner 10:49
I understand. I'm kidding. No, that's the at that age. That's the only position where you get the feel the ball. Yep, yeah, it's pretty. And then everybody else who stands out there going, is that
Carrie 11:00
baseball really fun, really exciting.
Scott Benner 11:02
I watched I'll never I don't think I'll ever forget. I don't know the kid. And I have no idea what his name is, or you know where he is now. But around that, like eight year old time, was the time when they would give the young kids one nighttime game at our little league field so that they could come at night and play under the lights and everything. And it brought out into the middle of summer. And it brought out these weird moths. I don't know. Like they were just big and weird. And one landed in right field. And the kid just walked over to it. And He squatted down. I mean, the game is happening. You understand? You know, it's it's not like in between the batter or anything. He squats down. He's poking at it. He picks it up. He's got it on his hand. He's got it up in his hand. Now he's examining it in his face. And I'm like, I don't like this kid is long for baseball, you know? And sure enough, he was he left pretty quickly after that. But I mean, that was that kind of encapsulates what happens when the ball can't go past the pitcher's mound. Everybody else is just in a coma. So it's fun when they get bigger. Do you think we'll keep playing?
Carrie 12:06
He's pretty all in on soccer. love soccer. That's good at soccer. I'm not sure he has the attention span for baseball, but but we'll see. You never know. He's only six I don't have to plan is his professional sports career just yet.
Scott Benner 12:21
I am going to give you one great piece of advice. Okay. We'll move past this. This is for everyone. Listen, it's the best piece of advice you're ever gonna get about sports and kids. Hope that your children are good enough to play and have fun, but not good enough to dream about more. I'm telling you, that's the best advice you're ever gonna get. Right there just like that. Yes, because none of your kids are going to end up being 662 140 pounds and stay athletic. Like that's a random thing that happens to a random person. And you can be really good at something and, and still not fit the mold. And it's a lot of time and effort to put into something. So anyway, that's my best advice. It was given to me by a friend of mine, whose son was pitching at a D one school. And he said, my biggest regret was that he was this good. He's like, I wish he was just a little less than this. He's like, because he would have, he would have played in high school, he would have went to some nice little college, he would have played baseball, he would have graduated, he would have known it was over and that was it instead. Here he is, you know, 21 years old can throw 94 miles an hour and nobody cares. Right? Yeah. So anyway, there's my advice, and it bummed me all the hell out. But it'll save you a ton of money. If you listen to me right now get the kid at chess lesson. You know, and I don't know, some home weights. That's it. That's your sport. Go do something else with your time. Plus, I have a permanent farmer's tan, which I don't think I'm ever going to get rid of
Carrie 13:57
and being out watching your senpai right.
Scott Benner 14:00
Plus, it's the only thing I can imagine. Like, Carrie, I had somebody asked me recently, what I wanted to do in retirement, which was off putting because I'm 50 But I still you know, we're trying to financially plan. So I'm like, okay, and all I could think was watch Coldplay baseball. I couldn't think of anything else. Like, what else do you want to what do you want to do in your retirement? And it just popped into my head? I'm like, I want to watch the whole play baseball. And then I was like, and the guy said, Do you want to travel? And I'm like, I'm like, we'll be there playing
Carrie 14:34
baseball. Stadium to stadium. What kind of trouble? We're talking and I don't
Scott Benner 14:38
want it to be like some sad adult League. Where you don't I mean, like, I'm like, I wanted to be playing baseball. Can that happen? The guys like, I don't know, man. TFA I was like, Alright, I was like, just save as much money as you can. We'll figure it out later. I'm sure what's gonna happen is I'm gonna save as much money as I can, and then die. I'd give it to somebody else. That's about how I imagined This is gonna go. Alright, I'm sorry. Anyway, you are in the hospital, your kid is yelling at people. How long do you have staying in the hospital? What do you leave with as far as understanding?
Carrie 15:12
Okay, so he thankfully it was not in decay. We caught it sort of very early, I guess on the spectrum of how these things go his agency what wasn't crazy. So we, we were admitted for a few days, you know, sort of whatever the standard is one of the first pieces of advice besides tell them you think he's in DK to cut the line that our friend gave us was refused to leave the hospital without a Dexcom. And I didn't even know what a Dexcom was. I like Googled it, watch the little video and told the nurse practitioner that was like, a sign to deal with us that I wasn't leaving the hospital without a Dexcom. And she was like, Well, I can't, I can't like I'm not allowed to show you how to do it. And we really want people to learn the old fashioned way, and blah, blah, blah. And I'm like, Okay, I'm not leaving without a Dexcom. So we got the Dexcom in the hospital, thankfully, and, and the truth is, I like can't imagine having gone home without it.
Scott Benner 16:14
How did you make that happen? If they were like, we don't do it that way.
Carrie 16:18
Um, I tried to find a hook where I could convince them that they had to do it. And my son goes to a small Country Day School that doesn't have a school nurse. And so I basically said, I can't send it back to school without the ability to remotely monitor him constantly.
Scott Benner 16:38
Very smart. That word, they were like, Oh, all right. Isn't that funny?
Carrie 16:43
She was like, Okay, well, I'll write the script, but I'm not going to show you how to use it. I was like, Okay, well, that's even dumber than not writing. Right? Like, okay, I'm just gonna give it to you. And like, so I watched some YouTube videos, and we put it on him. And yeah, yeah,
Scott Benner 16:58
I mean, I don't think I'm supposed to say this about any of the products that are advertisers on the show. But this stuff's not that hard to figure out. Right? Yeah. You know, I read, the YouTube video works great. You could call me I could have explained it to you in three minutes, you could have called your friend, they could have hadn't found
Carrie 17:14
you yet. I found you shortly after, but you were not yet in my life. Oh,
Scott Benner 17:18
when does that happen?
Carrie 17:20
I think a week later, a week after we got out of the hospital, you know, I was doing what they sort of tell you to do, which is haul their helpline and talk to a different doctor than the one that's been dealing with you. And talk to them about changes and stuff. And they lost me at post bolusing. To be honest, it didn't take me that long to figure out that, that takes insulin a little while to work. And if you're constantly dosing at the end of meals, they that you're gonna, you're gonna have a problem. And so I asked them, I said, Well, why are we dosing him after the meals? Why aren't we dosing him before he eats? And they're like, Oh, well, like that comes later. And I was like, Okay, you're managing me. So I need to stop talking to you and do some Google searches and try to figure this out on my own. And that's what I did.
Scott Benner 18:13
Yeah. So you, you felt what was happening very quickly, that they were feeding eggs they were being spoon feeding you information slow. Yeah, yeah. And you were like, Alright, I want to get to the other part. Now.
Carrie 18:25
Let's fast forward, the management, you know, the managing me and let's talk about how I'm actually going to, like, manage my child,
Scott Benner 18:31
what was the like, what was the post meal spike looking like?
Carrie 18:38
Read hundreds, before we started Pre-Bolus, saying, I mean, pretty significant. You know, I had some concern when we started Pre-Bolus saying he's six, what if he doesn't eat all that we think he's gonna eat and stuff. But I got pretty comfortable that there wasn't a problem that juicebox couldn't fix. And that it was worth it. And so, I mean, we haven't seen barring pump failures and things like sort of just sort of technology happens. We haven't we haven't seen numbers like that in a very long time.
Scott Benner 19:13
Yeah. I sometimes look at the podcast as a whole. And I think it's just really a message about common sense around like for ideas. And I and I wish there are days I wish I could figure out a way to just say it one time, in 20 seconds, and make one episode just leave it up. You don't I mean, and and I feel like I tried to say it sometimes like that. I'm like, Look, here's what it's about. It's about timing and amount. It's about understanding the impact of the food like that kind of stuff. I know that you need the bigger conversations to understand it and everything. But it mean when that's the truth, that they're really just these couple of things you have to do to manage a meal and people are busy telling you to do it, opposite of how it works, which leads You just just I don't want to start you down this path of like, it's like destruction, it's like, we're never going to figure this out, because you've put me on the wrong path.
Carrie 20:10
Right? And it changes your expectations. I mean, you've talked about expectations in a slightly different context. But if you if you start to think like, Okay, well, I'm seeing a spike to 300, and like, the medical team is okay with that, then you start to think that that's actually where your child should be or where you should be aiming to get your child.
Scott Benner 20:33
And it's not carry, it's not the process. That's the problem. Like I understand the the slow start. And let's give you some of the information now and some of the information later, like all that makes sense to me. The problem is that during that, during that time, someone forgets to explain to you, this isn't how it's always going to be. And here are our expectations moving forward. For now, it's going to look like this, but in the, you know, blah, blah, blah, or later, we're going to want it to be this way. And it's exactly what you're saying. It's, I remember it as clear as day from an episode, like from the first year when this woman said to me, they gave me a range up to 200. And I kept him here, but then it started to go up. And I thought, Well, okay, that's fine. It's only 130. And then it was 140. And I thought, well, that's fine. It's only 140. I mean, that's only 40 points higher than 100. And before you knew it, she was at 200. Gun. Well, 200 is only 100 points higher than 150 or 50 points higher than 150. And I was fine at 150. And she just kept talking herself into the numbers being higher being okay. And I thought that's how people's minds work. Like that's how people gain weight. That's how people you know, do hard drugs, like I'll just do a little coke after work. And then then you don't I mean, like, it's like that kind of thing. Like, everyone thinks our brains are. I don't know why. But they're wired like that. And so the process coming out of a hospital, most hospitals with diabetes is just putting you in a bad situation where eventually you're going to be like, I'm just doing heroin. It's fine. You don't eat meat like that really is. I don't, I don't snort it. Like you don't I mean? Like, like, at least I'm not doing this. And then the next thing you know, your kids blood sugar's to 300 after every meal and you're like, Well, this is what it does. It's okay. The guy said it was alright. So I hear you are Well, I'm glad it hit you that way. You find the podcast, I'm talking in your ear, your blah blah, blah. Now we're gonna fast forward a little bit like through diabetes stuff too. He gets a pump
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Carrie 24:11
he gets a pump so we switched endos pretty quickly after I found the podcast and found an endo that was sort of much more the technology is there let's use it let's get it in your hands there's no reason to you know quote do it the old fashioned way for some ridiculous amount of time. We had him on a pump we started it like right before the holidays in December so you know a month and a half or so after after diagnosis
Scott Benner 24:43
and tell me which pump that wasn't I'm sorry.
Carrie 24:45
So we did the dash. We you know we vacillated you know between the wonderful pump options that are out there and for my son the the two pumps were just you know, he'd been pretty great about The whole thing given that his world was pretty shattered to, and his one, you know, red line was that tubing, I'm not doing it.
Scott Benner 25:10
Okay, well, so you end up on dash, and you're listening to the podcast? How are things going as far as like, what are your goals? And what are you seeing as far as outcomes?
Carrie 25:22
We're doing pretty well. You know, 65 70%, in range in range being kind of the default, I hadn't yet figured out. That wasn't the range that I should be hoping for long term, but it was taking a lot of work. I didn't think our basil was right. I was a little bit lost on what to do about that. Listen to the episode got that nailed down. And I'd say, so we cruised along on dash until, you know, beginning of May. And we were, we were 70 75%. In range, more highs than lows, nothing super high. And, you know, once in a while, we get a glimpse of an 85 or 90 or 95%, and range. And those were, you know, days where I'd screenshot my, my phone and like, you know, pat myself on the back, but nights, you know, waking up two or three times a night was pretty common. We were we were micromanaging it. I was literally a full time paying Chris. Yeah.
Scott Benner 26:32
So when you hear about on the pod five, is that something you thought immediately about? Or did you take time to? Oh, yeah, okay.
Carrie 26:42
I was, I was thinking about, actually, pretty early on, and then found out that the Omnipod, five was close to approval, although there was this caveat that people had been saying that for a long time. And I thought that was, you know, it was worth waiting a little bit to see if that came down. Because honestly, it just seemed a lot less intimidating to me. I mean, remember to we hadn't, we hadn't been doing this that long. So it felt less intimidating, it felt a little more user friendly. And I'm, I'm a help desk person, like something goes wrong on like, my work computer or my work email. Like, I like that I have someone to call and talk about that with. And on that basis alone almost loop didn't seem like the right fit at this time. So
Scott Benner 27:33
I gotcha. Yeah. When when your email won't work. You don't sit around trying to figure out how to fix you're like, I'm just gonna call this guy at the number. Yeah, that's me. I'm a help desk. Let her tell me. I'm not doing this. So I understand. I absolutely do. And so you get on the pod five, when may 7. Oh, look at your camera, like came on Mother's Day?
Carrie 27:55
Oh,
Scott Benner 27:57
that's an easy way to remember. Okay, so hold on. June, July, August, September, October. Oh, wow. You've had six months, six months. Okay. Great. Tell me all about it.
Carrie 28:11
Okay, well, the important caveat here is that we got it. We were We were one of the first people at least as best I can tell on like Facebook, who weren't in the trial to get it, or endo hadn't been trained on it. They were like, we're not going to be any help to you. You got to figure it out. We'll write it at the time it was off label because my son wasn't six yet. Well, we'll write the script, but like you're completely on your own. You hadn't you hadn't done any Pro Tip series on this yet. So we were really like, open the box, read the manual, try to figure it out. And with the benefit of hindsight, I might have done our setup very differently and probably saved ourselves a lot of time and heartache. But we you know, open the box and put in our settings and had a lot of struggles at the beginning.
Scott Benner 29:00
Okay, so your settings where
Carrie 29:03
we put our settings in from dash, I mean, which were good settings for Dash but I hadn't, I hadn't appreciated I was too impulsive about the whole thing. I hadn't appreciated how the algorithm was going to work. I had been so jumpy about getting it and wanting to try it right away that I hadn't. I hadn't thought through or reached out to resources about strategies for setting it up. I literally just dumped my settings in in hippo and I was like, Okay, great. We're
Scott Benner 29:31
all going to sleep now. So over, everyone is over.
Carrie 29:35
We're done with diabetes. I told my job I was gonna come back full time I was like, this is the you know, next week maybe the week after will be good.
Scott Benner 29:43
Yeah, I'm probably gonna start running like marathons and I am gonna die it probably probably gonna get shredded. You know, maybe
Carrie 29:51
I'm gonna have all this time on my hands. What on earth am I going to do with myself?
Scott Benner 29:55
I think I should knit while I'm running. This is going to be wonderful. So in stat is what, let me guess. And if I'm wrong, of course, not me, is what you learned over time that your settings from a manual pump were a starting point, but that you were adding insulin so frequently and other places that really your settings were very weak.
Carrie 30:18
That's completely true. The other thing that we struggled with was, there was no real direction on let the algorithm work, let it learn, don't touch it, let it do its thing, right. And then he'd be at like 250 and climbing and I'd be sitting in the corner, having an anxiety attack and being like, I can't let it learn on its own. I must give him insulin. And, you know, and then being told, Well, you're gonna screw up the algorithm when you do that. And you've done that. And so now you've like, set yourself back.
Scott Benner 30:51
Isn't it funny? Because it's the beginning. And it is a it's a different algorithm. There are people who will tell you don't touch it. Don't do anything. Don't just let it we'll figure it out. And then there are people who will say no, if your blood sugar's high Bolus and right teach it that you need it, you need more insulin, which I believe is the is the line, right from my, from the nurse practitioner that was on my thing, right? She's like, if your high Bolus, it'll figure it out when it sees more insulin, but you don't know either of those things to be true or not true. So you're just sort of sitting there going,
Carrie 31:28
right, I'll go a few days where I'll let it do its thing, and he'll be high, and then I'll have a panic attack. And I'll be like, I can't do it anymore. And I'll give him tons of insulin. And then it didn't seem to work. And so, I mean, the first the first month was really, really tough. I mean, it was our it was our own fault, in that we weren't sufficiently educated and didn't have the right expectations and didn't know how to manage it. But once we went back to kind of basic principles of insulin and how things work, we'd started to get better and figure it out.
Scott Benner 32:01
Right? Listen, if it makes you feel any better. As soon as last night, Arden had a she knows what to do, like the meals at college are terrible, right? So she has to basically make a secondary Bolus for her meals that come out of the cafeteria. She has to it doesn't it doesn't matter how big she tells it. Like if she if she says, Hey, this is 70 carbs this meal. And you know, she's She needs a secondary Bolus later, if she would have held the same meal, it's 90 carbs, it still wouldn't matter. That's how crappy the food is, you know what I mean? And, and so you have to, I mean, you have to understand how these algorithms all of them end up working. And so for Arden, who's looping last night, she has this one at blood sugar, like two hours after a meal. And I'm like Arden, you didn't make the secondary poll. She's like, well, I'm doing my homework. I forgot. I was like, well, that's fine, but put an insulin right. And so I I can see on Nightscout what she did. And she just makes a Bolus. And I text her right back. I'm like, Hey, that's not going to work. You know, that's not going, what are you doing? Like so She's so busy with her homework. She's just she like throws in like a unit a half of insulin. As soon as she does that the algorithms like a unit a half, we don't need this turns off her basil. And that's probably what was happening to you, when you were putting in extra insulin, like you told the algorithm, these settings are going to work. And then you're like, No, no, here's a whole bunch of extra insulin. And it's thinking, No, I'm going to get this blood sugar back down based on our settings, except it never was going to because your settings were that far off, I guess for the algorithm, how long did it take for it to learn? Or did you did you bite the bullet and reset the controller and start over. So we didn't
Carrie 33:49
do a reset? We did go all in on the teaching it if he's high on bolusing if he's heading high on bolusing, we made all of our carb ratios, more aggressive. We started treating lows much less aggressively and really like micro dosing it because the you know, we then understood that the background, it's basil, the micro boluses had been shut off for a while. And so the what we used to dose on the dash to treat a low was going to spike him super high if we did it this way because there was no insulin circulating around in his system. And we started just thinking about it differently. Like not to not to use the sports analogy, but I've I've used this when other people who are just starting on the five have kind of reached out to me. It's a it's a great teammate. It's like a star shortstop. It's gonna do a really, really great job, but you still have to you have to be in the game and you still have to play the game and it's so required ers, you know, work and care. And it can only it can't do there's, you have to recognize what its limitations are and kind of jump in,
Scott Benner 35:09
right? I feel great about what you just said about learning how we treat low blood sugars when you're on an algorithm, because I'm starting to see a lot of people figuring that out online, which is, which is really good. But the idea of, you know, if you're treating a low it, one o'clock in the afternoon, but this algorithm has been thinking for the last 90 minutes, you're gonna get low at one o'clock in the afternoon, it's been taking your Basal way, and insulin away in one way, or in one fashion or another, probably for 90 minutes. So yeah, you're still drifting low, because whatever happened before, ended up being too heavy. But there's nothing there to resist when you put carbs in, in that scenario. And so all of a sudden, 15 carbs or juice box or something like that, is going to turn you into a it'll turn into 250. You know, instead of before, when your Basal had been running the entire time in the background and you were low. It's odd that that low blood sugar on a manual pump versus that low blood sugar on an algorithm. The number is the same. But everything that happened prior to it's different.
Carrie 36:17
And the effect that anything's gonna have on it is totally different, right?
Scott Benner 36:21
Because there's either more or less insulin, new insulin from baseline for the last 90 minutes, depending on which system you're in.
Carrie 36:32
We rely on you know, the, the PDM. For the Omnipod. Five, there's a way to kind of see how it's been micro Bolus thing. And we try to look at that before we make any low treatment decision or any Bolus, you know, to stop a high or to stop a climb. Because we like you have to factor in what the pump is doing and how long it's been doing it for.
Scott Benner 37:00
Yeah, I think I'm supposed to say that it's a controller not a PDM anymore. Sorry, no, no, I don't. I just I don't want to, I don't want to get a text. Like, you know, a week after this comes out. And somebody says, hey, at 34 minutes in your conversation with Carrie about on the pod five, she calls it a PDM. And would you mind? So I'm getting around that right now. My son
Carrie 37:24
calls it the doser. So you know, whatever. Oh,
Scott Benner 37:27
yeah, that's great. I know, a lot of public relations people who'll be thrilled to know that. Give me the picker and the dozer and let's get rolling here.
Carrie 37:36
Yeah, that's, that's six year old terminology for about
Scott Benner 37:39
right for me. Okay. So how long did it so is hindsight telling you that you didn't put settings in in a way that was going to give you success up front? Yes. Okay. So did you have you learned over time that what, what ended up being in those Omnipod five pro tip episodes is true. Like, for some reason, when that algorithm begins, the settings needed to be somewhere near 5050. Basal Bolus, and then it adjusts off that it doesn't it won't even keep doing that five minutes later. It just for some reason needs to know that going in.
Carrie 38:16
Yeah. And look, I mean, one of the things that we've struggled with me occasionally, you know, talk about with some frequency is like, Should we do the Hard Reset? Right? Like now we're six months in, we have all this knowledge that we didn't have at the time. But I don't know if so risk feels like, I've spent six months teaching this out what to do, and it's pretty darn good.
Scott Benner 38:39
This is why women stay with men. Right? Yeah.
Carrie 38:43
Yeah, I mean, it's, you know, it's a big, it's a big leap to take. So I'm not there yet, though. You could you could potentially get me there. If you if you thought that was the right thing.
Scott Benner 38:51
No, listen, if I listen, but I know is, you know, not going to be helpful to you probably but so to kind of go over that a little bit. You know, it's in the on the pod five Pro Tip series, which I did in conjunction with Omni pod and healthcare professional and they're actually I have to say, so they're, they're, they're, they're good episodes, like they'll really will help you. But the the algorithm once 5050. And I have to say if I had that conversation prior to starting on on the pod five, when we started her, I would have probably just taken her total daily insulin and chopped it in half. I think that's what I would have ended up doing. I think I would have just said like, I don't know, she gets this much insulin every day. I'll take half of that number divided by 24. And that's going to be our Basal rate.
Carrie 39:45
I mean, that's what we would like if we were starting this now with all that with the benefit of those episodes and that knowledge, that's what we would have done, but, you know, we we didn't have it and we're not anywhere near 5050 Um,
Scott Benner 40:00
Yeah, not not not to say that your son needs 5050. It's to say it's you really have to listen to it to hear to explain, but that's what the, for some reason, that's what the algorithm needs as it begins to learn. Right. Right. Right. So, and I don't, I don't know. Like, I don't know why it doesn't just, I don't know. It doesn't. Listen, I don't know, I didn't program the thing. So I don't understand how it works.
Carrie 40:26
It just is what it is. But in retrospect, given what we experienced in the first few weeks, it's easy to see why that it. It makes clear that what what you said in the in the episode about that is right. Like we were not at 5050. Our settings were at 5050. And that was a mistake.
Scott Benner 40:44
Okay. And so what you got out of that were spikes and meals,
Carrie 40:47
spikes at meals, she, you know, huge spikes with low treatments until we figured out that we were completely doing that wrong. And, but pretty stable night times, almost from the beginning. I'm not sure that without the stable night times, we would have stayed with it at that time. You know, I think we would have probably stopped it and then come back to it once like there was more kind of knowledge of how to set it up and how to get started with it successfully out there. But I was jumping in I wanted it and I wanted it now and you know, there's a price to pay for that.
Scott Benner 41:29
You were enticed by the sleeping? Oh,
Carrie 41:33
yes, it was good. I mean, really can't. And we haven't been at it that long. We were only sleep deprived for you know, from like October to May I can't imagine people that have not slept in years. How wonderful. Something like this would be. But like barring a technology failure, a compression low that screws things up. A sensor error, you know, a pump sight absorption issue, right? Something like on the technology, we all basically slipped through the night. Yeah, no, that's pretty great. It's really good.
Scott Benner 42:10
Yeah. Arden had the same situation with the Omnipod. Five, like almost immediately, like her nights are for really terrific. You know, actually, I've learned a lot about overnight since Oregon went to college because because she's so far away, excuse me. And you know, there's no way to help her and all that stuff. We did kind of dial back her her overnight numbers a little bit like, you know, I'm okay if she's overnight at 95 100 105 110. Like she because she's 13 hours away from us. And you know, my best bet to save her life. If, if something happens is a person who lives with her who may or may not be drunk, you know what I mean? So excuse me, when that becomes your reality. You're sort of like, alright, well, let me be a little more careful. But after the first couple days, and getting things figured out, like I mean, I should probably knock on something. But Arden hasn't had a low overnight, like the entire time she's been away at school. Yeah, it's huge. It's a big deal. So, so Okay, so that that kept you in the game a little longer. You're like, Alright, man, again, I'll figure out the rest if I get the sleep. Right. So what did you actually figure something out?
Carrie 43:23
No, I Well, I changed our changed our ratios, so that he was getting bigger Bolus is at mealtimes. But in an effort to raise the total daily insulin and compensate for what I viewed as like, a less aggressive than I'd like, micro bowl, I
Scott Benner 43:43
stop you for a second and so on the pod says that when you change that settings in the pump, when you put settings on the pod five, those settings, as soon as the algorithm begins to work, those settings are only for manual operation, that that is completely correct. Okay, so you're saying we might say you change ratios? You mean Sorry, you kind of started counting carbs differently.
Carrie 44:09
I started counting carbs differently so that he was getting more insulin per day than he was getting with our old.
Scott Benner 44:19
Right. So you, if I met, you said, Hey, carb ratio is one to whatever you thought it was, right? You see that not working? You can't just go tell the pump. Hey, magic algorithm, instead of it being one to 20 carbs, I want you to make it one to 15 carbs, because that doesn't change the algorithms opinion. Right? And so you started counting up a meal and going I think this is definitely 40 carbs, but I'm going to tell the puppets 50
Carrie 44:48
Right. I'm going to give him more I'm going to tell the pump that he needs more insulin on a daily basis so that when the pump is aiming for it's 5050 it's Thinking about the total bottom line number differently.
Scott Benner 45:03
But then after it figures that out, does it mess you up when you're counting carbs? Like you always have to overestimate the carbs? If no,
Carrie 45:10
then then you got to back it off. Okay? So the other thing that we I don't want to say like figure it out. But we started changing our Pre-Bolus time. We were we were militant, about a 15 minute Pre-Bolus. Scott said it's a 15 minute Pre-Bolus, the pro tip episode says it's a 15 minute Pre-Bolus, it must always be a 15 minute Pre-Bolus. And what we found was that, depending on how much might how active the algorithm had been in the background, leading up to the meal, a 15 minute, Pre-Bolus wasn't always going to lead to a successful outcome. And that, you know, whereas prior, you know, on the dash, let's say he goes, you know, iDose for a meal 15 minutes before he's 115 and flat, and I want him to be, you know, 90 Heading down when he's going to eat whatever he's about to eat. So I, I Pre-Bolus, for what I know, will get him there. If you take that same strategy on the Omnipod, five, what we were finding, and Danny is pretty insulin sensitive. So there's a caveat there. But what we're finding is that the algorithm would see him heading down, and would reduce or cut off the basil or the micro boluses. And if we could have him eating when he was 100, and flat or 110. And flat, there would still be insulin being given to him in the background. And that was leading to much more successful outcomes post meal time. So we started changing the Pre-Bolus time from 15 minutes, I'm really sorry, I know it's supposed to be 15 minutes, not
Scott Benner 46:58
supposed to be what they meant.
Carrie 47:01
But we we we have now sort of adjusted it based on what how much insulin, we think he has circulating his system based on the auto history. And it's been a lot more successful.
Scott Benner 47:13
And you've been making the Pre-Bolus longer or shorter, shorter.
Carrie 47:18
I mean, if he's high, we'll make it longer. Or if he's heading up, we'll make it longer because we want to give the insulin a chance to work. But if he's kind of where I want him to be after the meal, depending on what's if he hasn't gotten the insulin in a while in the background, we'll keep it around 15 minutes. But if the pump has been active, we'll make it we'll make it shorter so that he doesn't go low pre or during mealtime, right.
Scott Benner 47:45
Wow, you're good at talking about this? Do you know
Carrie 47:49
I've listened to you a lot. And I'm just trying to
Scott Benner 47:53
know I mean, you're good at explaining it. You know, it's it's a simple idea. And it gets lost on people when they make the switch from pumping to algorithms that there's nothing in your pump, when you're using a regular pump that says, hey, you're getting low. So I'll turn off your Basal insulin. And because of that, all of your experiences are predicated on a constant delivery of basil. And now your experiences aren't always predicated on that. And it's a leap for some people. And I don't know if it's just because they don't think of it that way. Or if they have just been if they if they really didn't know what they were doing before they just learned what to expect and how to handle it. Do you know what I mean? So I was very heartwarming to hear you thinking through all this and figuring it out. Well, today now six months later, what how's it going? I mean, do you spike it meals anymore? Did you figure that all out? It's it happens sometimes you know how to fix it. What happens? I
Carrie 49:04
mean, look, he's six. So so there are there are days where, where it's just total brilliance like Halloween, Halloween just happened. That's a that's a good example. He was he was 99% in range 80 to 150 as the range set the entire day. And given what went on that day. Like I pricked his finger when he was fine, because I didn't believe that the Dexcom was working, because it was it was that good. So there are there are stretches and days of like total brilliance. And then, you know, there are days when for whatever reason, were less successful. I mean, the variables are still there. It's not eliminating the variables. It's not eliminating a super absorbent pump site where he's gonna be low more. It's not eliminating the level of activity. It's not eliminating growth hormones like one of the things that we didn't know at the beginning, but we've learned is that the algorithm can't learn time of day, the algorithm is never going to learn that your kid goes to sleep and starts climbing at 10 o'clock at night, it's never going to learn that it can't. So that's where like, you know, you need to be the team player, and you need to come in, and you know that that's going to happen, you have to, you have knowledge that the algorithm doesn't that every night at 10 o'clock, our kid rises because of growth hormones, and we need to Bolus that we need to Bolus it early, and we need to do it aggressively. So, you know, in terms of in terms of outcomes, his his agency is great. His time and range average over 90 days is is 89%. And, you know, there are some bad days built into that. And then there's some real brilliant days built into that. And you know, I'm not, I'm not sure how to make it better, I have noticed that like, one of our struggles now is figuring out how to string together, more of the brilliant days across multiple pump changes. I think it's the learning nature of the algorithm, I don't know. And I don't think insolate has shared sort of the period of time that the pump considers in making adjustments to its own calculations, but you have to recognize that that's like an evolving thing. And I'd like to be able to stretch together more brilliant days in a row without a bad day in between. But I'm not sure how realistic that is,
Scott Benner 51:47
when all this technology comes out doesn't matter what company it comes from, I always try to remember how amazing it was to get a Dexcom the first time. And now in hindsight, I look back at it. And I think well that thing was not as accurate as it could have been. It was difficult to put on it the use of a manual inserter the Dexcom Did you know that you'd like put the sensor bed like on and there was like a tube that came off it with a plunger at the end. And you would actually have to like, like, boom, like push down on the plunger to get it to go in. And you know, like I look back on all that. And I think well with hindsight, that looks like a train wreck. But in the moment, it was the best thing I've ever seen. Yeah, it was the absolute the best thing I had ever seen in my life. And so I try to apply that idea to Omnipod five or blooper, anything that people I keep thinking like, imagine what its gonna look like a year from now, or two years from now or five years from now, like, this is gonna be amazing, you know? And you're not describing something that's like, oh, a train wreck you're describing? Yeah, yeah. And that's what I want to understand, like, compared to you doing it manually. So for a moment, take out all of your effort and your time and you're not sleeping, right, because we understand that you got saved all that stuff. Right? Just just management, just health wise, are you where you are before, worse off or better off?
Carrie 53:18
Definitely better, unquestionably better. You know, both on on a numbers basis, and also on my mental health in terms of the variables that I'm dealing with. I mean, I remember I listened to like your pro tip episode on like basil testing. I'm like, sitting there looking at my, like, newly diagnosed six year old, and I was like, No, effing way. Right. Like, like, it just felt so hard. And then the idea that you could nail it and then have to change it. And the beauty of the five is that it it kind of takes if you're just camping out in automated mode, which is what we do. Like, it kind of takes that away, like it eliminates the variable of whatever you think the Basal rate is or should be. And that's, that's really freeing.
Scott Benner 54:12
Yeah, no, I understand. Excellent. Well, that's great news. Like you're a, you're a proponent, that if somebody came to you and said, I'm thinking of getting this, you'd say, do it.
Carrie 54:24
Absolutely. Do it. Understand how it will work, right? Understand that it's the teammate. It's not going to carry the team, you have to be there, you have to be engaged. I think the auto history is really important. And factoring that into how you manage your child is is really important. And I think that there's, um, that on the low treatment side, I mean, we we made this chart for like his summer camp. He goes to like a day camp locally, and they have a nurse team that manages it and they've been managing kids with diabetes. His for a long time. And we roll in and they've never heard of the five before. And they're like, Okay, so if he goes low, we give them a juice box, right? And I was like, Wow, no, here's my, you know, Excel spreadsheet of different scenarios where you might treat with two carbs, or six carbs, or eight carbs. And I think if you can, if you can figure that out, and what works for your kid, and figure out the Pre-Bolus time, you know, are you going to have a flat graph, you know, flat at 110 or 100, every single day. I don't think that's a realistic expectation, or at least I haven't figured out yet how to make that happen. But, look, I mean, you high 80%, over a long period of time with sleep, almost doesn't matter what you have to do during the day.
Scott Benner 55:49
And your, your son's not eating like a pescatarian diet are some specific,
Carrie 55:56
if I told you what my son ate, it would make your skin crawl. He has Eggo waffles and pop tarts and pizza and cake. And I mean, we, you know, there's lots of different schools of thought for us and for our family at this moment in time. Keeping his normal as normal as it was, was really important, I think, for his mental health and his acceptance of this. So that's the choice we made and may make a different choice down the road, he may make a different choice, but no, I mean, like I, I can dose Toaster Strudels and not have a spine. Now,
Scott Benner 56:32
when I look at you, I have two things I want to say here. One, I'm going to say kind of sounds joking, but I'm being serious. On the pod.com forward slash juicebox. If anybody listening is thinking about getting an omni pod dash or an omni pod five, thanks very much. The second thing is, I I'm, I'm really stunned at how you were able to take my like not the Omnipod five Pro Tip series, but the other Pro Tip series, the bigger one, and you took the information out of it, and you did with it what I intended, which is you, you learned about it, and then you molded it into your life, and you extracted from it and built onto it. I know that people can hear them and think these must be the rules. But they're just a jumping in point, do not Don't be mean like you have to experience the rest of it that you have to apply it and watch it work and watch it fail and go, Okay, I that's really I don't know, I'm just very I don't even know what the word is, like, you're making me feel very good about something that I did.
Carrie 57:41
You should I mean, we, we wouldn't be even close to where we are now. Without that, and the fact that it can be applied to, you know, the fact that it can be applied to a new technology that didn't even exist when you were or at least didn't exist in your world, when you're making a lot of these episodes, insulin still works the same way. And it works the same way, whether you're on loop or on the five or anything else. And you know that
Scott Benner 58:11
that's great. It really is amazing. I'm, I'm so happy for you guys, first of all, but I don't know, like you say something out loud years ago, like this whole thing, like, you know, I used to say all the time, like managing insulin is about timing and amount, you have to use the right amount of insulin at the right time. And it holds true. If you're putting it in with a syringe, if you're putting it in with a pump, if you're putting it in with an algorithm, it all still is the same there are influences on your blood sugar, and there and and you know, that are carbohydrates or body function or whatever that are trying to push your blood sugar up. There are influences on your blood sugar that are insulin that are trying to put the push them down. And you just have to kind of keep those influences in a state of flux where they really neither of them can kind of beat the other one. And then that's what stability is. You know, and if you can wrap your head around that, then you're on your way. But I don't know I mean those protip series it's 2022 in November, I think they came out in 2019 or 2020 Maybe it so they're already two almost three years old and and that they applied to another Technologies. I'm just very happy today to hear this from you. It's it's interesting. I feel like I'm hearing my voice filtered through another person's life and then spit back at me if that makes sense while you're talking.
Carrie 59:37
Oh, that's that's great. I mean, I you know, I think some of in addition to the Pro Tips The one thing that I would say is you know, there are little nuggets in a lot of the other episodes that can be life changing. I mean, I I've said to other people that changing our ducks calm lines changed my life and rethinking about the way that you say Your own expectations is is also, you know, as the caregiver, your you know, our mental health matters to matters less but matters too. And, you know, the way the human brain works? I mean, you said at the beginning it, it, it's consistent. So
Scott Benner 1:00:16
yeah. Well, so do you feel like take all the diabetes stuff away? Do you feel better? Now, like than you did a year ago? Are you different?
Carrie 1:00:27
I mean, then then at diagnosis, yes. I mean, we, I recognize that, like, we're, we're early in this in this marathon that a lot of people have been plugging away at it a lot longer than us. And, you know, we sort of have this luxury of having the, you know, the best technology available now. And that's, you know, an incredible gift that I feel like I've given my kid. Yeah, I mean, look, are there days where I want to still sit in the corner and cry? Of course, absolutely. Like, both, you know, on a macro level, because he has type one diabetes, and also on the micro level, because maybe he's having a day where what I think is gonna happen doesn't really happen. But I think I'm getting better at it. And I think you do. At the beginning, everyone said, it gets easier. And I was like, That's BS, right? That's like when someone you love dies? And they're like, Oh, time will heal it. It's like, No, it doesn't heal it. I still missed the person. It doesn't get better, you just get better at it. Yeah,
Scott Benner 1:01:36
it's 100%. Right. Now, I mean, I don't know if you're quoting me, or if that's your experience. But yeah, that's, it's just right. diabetes is always hard. And, but there'll be a time when you have so many tools and so much experience that it's, you know, it's it's, I don't know, it's sort of like when you watch a sporting event, or, you know, you think God, how does that person do that? Yeah, I could never do that. But right, you know, maybe you couldn't, maybe you couldn't throw football 70 yards in the air, right. But you could find a way to get better at throwing a football and you might get you know, and then that would make the thing the task easier. And this is what happens it to all levels with people.
Carrie 1:02:15
And I'm hoping the week continued, that it continues to get easier, because I still feel like it's my full time job. And I'd like to get to a place where maybe I don't feel that way. But I think it's like important to know that it's, it still sucks, it's always gonna suck, it's always gonna be a lot of work, it's never going to be like under control. But you do start things get easier little things, we wouldn't let them have Toaster Strudels at the beginning, because I couldn't figure out how to dose for them. And then eventually, I figured out how to dose for them. And now he's happier because he can eat his crappy breakfast in the morning. And little thing, like those things get easier. And I'm excited to see how much easier they can get as we kind of go through this.
Scott Benner 1:02:55
Oh, the other, um, a couple weeks ago, art and I saw something happen with her blood sugar like it started to go up. But then it stopped. And it got like, whatever. I wasn't with her. But something hit her hard. But her Bolus hit hard back and then she leveled out. And she was good. And it didn't take long. Like it wasn't a big spike or anything like that. And I asked her later in the day, I was like, Hey, would you eat you know, last evening, like eight o'clock or something like that. She was oh, I got hungry. And the cafe was closed already. I couldn't get over there in time. And I was like, okay, she because I just had a bowl of cereal. And I was like, Oh, wow, I didn't ask her what kind I don't know what she ate. But I all I know is that my 18 year old daughter Bolus, a bowl of cereal, didn't go over 140 and didn't get low afterwards. Like, that's amazing. Because I can remember, I can remember standing in my kitchen, going, Hey, what do you want for breakfast? And then thinking in my head, don't say cereal? Don't Don't? Don't Don't Don't Don't Don't say that. You know, and, and then there's that, of course, there's an episode where I talked about where she got old enough, you know, when she was younger. And she was starting to understand her appointments. You know what I mean? We're in with the Endo. And then we got outside in the driveway. And she said, What could I do to make my agency slower? And I said, well, for the moment, if you could just stop eating cereal, that would be huge. Because I haven't figured out how to do that yet. This is a long, long time ago, you know, and, and she's like, okay, and she just stopped. That was it. And then I figured it out better. I figured out insulin in general. And then I started applying it to higher glycemic stuff and figuring out how to do that. And I mean, I wouldn't say that Arden probably has five bowls of cereal a year, you know, but at least we know how to handle it. Now when it happens. It's very cool. Carrie, is there anything we haven't said that you want to anything we've skipped or missed or that I haven't asked? I don't think so. We did it that easily. This was very good. I almost don't want to make this a long Are episode because it's so succinct. And you were so clear about it. Yeah, exactly. You'd come back later because you seem cool. I think we would like each other.
Carrie 1:05:10
I happen to be a Phillies fan as well. So I think I think we could get along very well.
Scott Benner 1:05:15
Are you in the area?
Carrie 1:05:17
I'm not but I went to college in Pennsylvania. Oh, no kidding. So I was surrounded by it for for a long time and didn't have a strong opinion of my own at the time about baseball teams. So I was happy to kind of sign on with what the group was doing. It would be
Scott Benner 1:05:33
hard to be here and not be a Phillies fan that's for sure. So why don't we just because it has to go somewhere in the episodes I will just tell you that the World Series is happening right now as we record this, the Phillies are down three games to to win the World Series are heading back to Houston for Game six. And my son and I actually went to the World Series last night, we went and watched the Phillies lose three toe. But it was one of those things that, you know, as soon as they got in, I said to him was like if we can find a way to go, we should go you know? And he's like, Yeah, okay. Like, like, you know, wasn't gonna get him to argue about that. I've never been to a World Series, I think he and I went to one, one national league championship game, maybe in 2011, if I'm remembering correctly. So the oddity is, we don't go to a lot of baseball games, like in person, like professional baseball games, because my son is usually playing baseball when baseball is being played, so you don't get that opportunity. And anyway, it very quickly became obvious that we did not win the lottery from the Phillies for tickets, you know, which are at ticket price at face value. And you start looking into the secondary market, and the tickets are just, they're ridiculous, like, you know, very cheap seat very, very cheap seats are $800, like $1,000. And you don't even get a seat, you get to stand in a sea of drunk people and watch the game, you know. And I went online, I thought, I wonder if I know anybody, like through the podcast or something that might know somebody says it does anybody? Would anybody be able to get tickets for this game that, you know, if they were interested in selling, I'd want to know about them. And the one thing you don't know is that a person contacted me privately and said, I have a friend whose father is a part owner in the Astros. And I might be able to get tickets. And we tried that that didn't work out because we asked so late. And other people would come online and say like I used to try here, actually, one person gave me an idea of of an app to use that ended up being less expensive. But what I didn't expect is that someone came on to the Facebook group and they're like, Hey, everybody, let's give Scott money to go to the World Series. And I'm like, now that gets weird carry because I have a job. You know what I mean? Like, and I'm not looking for people to like, I don't know, crowd fund me going to a baseball game with my son. And she, she had made this. It was Susie, she had made this like overture online. And I have to admit, I ignored her. Like I just I didn't want to like because no matter what I do, she's going to do it. Like if I go no, no, no, don't be silly. Please don't do that. She's gonna say no, you helped me or whatever. And I'm gonna do this. So I just kind of ignored her I felt bad. And then she emailed my moderator and said to Isabel, I want to put up a post to try to raise money for Scott to go to the World Series. And now I it's weird, because I'm you don't I mean, Carrie, like, I It's lovely. And that would be amazing. If somebody did that for you, but I don't need that. And there's part of me that doesn't want it. Do you know what I mean? Like, I don't want somebody to do that. So I told Isabel, you're gonna get a note. Ignore it. And, and she's like, Okay, I'm like, just don't respond to this. I feel bad. I'm like, just don't because it's gonna turn into people giving me money to go to a baseball game, and I'm uncomfortable with that. But then Susie just kept going and going online. And finally she put up a post and said, Hey, like, let's Scotland's go to the worlds here. You don't I mean, like, it's the weirdest, like, make a wish thing ever. I don't have any reason to be making a wish. And the next thing I know, there's like $1,300 in a pile. And I said to my son, I was like, Well, I now people gave me this money. I was like, i i I'd feel weird now not using it for what they wanted me to use it for. So we got up yesterday morning, found seats online, and I had a great time. Like, it was awesome. Really. It was amazing. It's the most intense sporting event I've ever been at.
Carrie 1:09:36
I brought my I brought my six year old to his first baseball my type one to his first baseball game. I took him to a Mets game over the summer. And I thought to myself like, Okay, this is gonna be hard. This can be hard to dos. He's gonna want everything. And it actually you know, it. It went really well. It was like one of those holes When miracles like the algorithm handled where, where I got it wrong, and I just kept giving insulin when I saw I'm starting to creep up, and it was actually like really empowering because you spend all this time counting the car, you know, when you're first diagnosed, counting the carbs and thinking about Pre-Bolus time and all the rest. And this was a night where we just sort of, alright, you want to chicken fingers in the fries, you want to chase it with that the ice cream cup that comes in the helmet like it is what it is.
Scott Benner 1:10:30
You probably felt the way I felt the first time in a movie theater that artists like I'm gonna get a slushy and yes, and cookie dough bites. I was like, I don't know if that's a good idea. But yeah, so I put your game face on. Yeah, we were no algorithms then. Like I remember us being in the lobby. And I was like, if you're gonna do that we're gonna Bolus right now. And I and my, my theory was bunch of insulin. And then we'll feed the insulin backwards, like so that's basically what we did. Like, we got her falling, and then you start hitting this IC and that thing, just boom, boom, that keeps trying to push you up. And I just kept using the IC as a parachute for the freefall from the insulin. And that I've you know, over over the years, I got better at it. But the first time that's what I did, I was like, I'm just gonna pour this insulin over your head, and then you start drinking the Coca Cola Slurpee that you just got. So anyway, Carrie, I really appreciate you doing this. I have to jump off because believe it or not, I'm recording another episode a half an hour. So
Carrie 1:11:32
I'm thanks so much for your time and for everything you've done for us. I really appreciate it.
Scott Benner 1:11:35
It's my pleasure. Did a lot for me today to like hearing you talk about stuff through the lens of the podcast was was uplifting to me. So I really appreciate that.
Carrie 1:11:45
Thanks, Scott. I really appreciate it. I'll talk to you soon.
Scott Benner 1:11:54
A huge thanks to Carrie for coming on the show and sharing her story with us. And I want to thank BetterHelp and remind you to go to betterhelp.com forward slash juice box to save 10% off your first month of therapy. So many of us spend so much time helping others. Once in a while you should help yourself betterhelp.com forward slash juicebox. A huge thank you to one of today's sponsors, G voc glucagon, find out more about Chivo Capo pen at G Vogue glucagon.com forward slash juicebox. you spell that GVOKEGLUC AG o n.com. Forward slash juicebox. Don't forget to check out the private Facebook group. It's completely free Juicebox Podcast type one diabetes. And if you're looking for all those episodes about on the pod five, there's a list right in the private Facebook group in the feature tab with all of them right there. I think you can also find them at juicebox podcast.com. Or go into your podcast app and search Omni pod five pro tip. They'll pop right up. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.
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