#926 Tough to Process

Kelly has type 1 diabetes and digestion issues.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 00:00 Hello friends and welcome to episode 926 of the Juicebox Podcast. Today I'll be speaking with Kelly. She's the mom of a child with type one diabetes. And we spend a lot of this episode talking about digestive issues which is very impactful for type one, and thusly why it's the subject of today's episode. While you're listening. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan for becoming bold with insulin. Speaking of bold, managed to get yourself some great sheets at cozy earth.com Save 35% at checkout with the offer code juice box, take care of your mental health@betterhelp.com forward slash juice box and when you use that link, you'll save 10% off your first month of therapy. And of course a free five travel backs and a year's supply of Vitamin D is what you get with your first order of ag one with my link athletic greens.com forward slash juice box. This episode of The Juicebox Podcast is sponsored by ag one from athletic greens, athletic greens.com forward slash juice box you can start your day off with this same green drink that I do. The podcast is also sponsored by cozy Earth cozy earth.com forward slash juicebox the most comfortable joggers I've ever owned and sheets I've ever slept on came from cozy Earth, save 35% off your entire order every time you order from cozy earth.com When you use the offer code juicebox at checkout.

Unknown Speaker 02:10 Are you ready for me to start talking? Yeah, I'm

Scott Benner 02:12 sorry. I said do it. Did you not hear me? Oh, gotcha. Gotcha.

Unknown Speaker 02:15 Okay. Well, hi, my name is Kelly. And I'm from Oklahoma. Well, I've lived here for almost 30 years. I'm not really from here, but this is where I am. I'm a mom of four kids. I just sent my last two to college last month. So I know you're an empty nester as well. Anyway, I was diagnosed as type one at the age of 49. And so seven years ago, almost seven years ago. We have a history of autoimmune illness, but no one else had type one prior to my diagnosis.

Scott Benner 02:47 Kyle, you're 56 and all of your children are gone. Isn't that beautiful? I mean, it sounds amazing. Yeah, well, my

Unknown Speaker 02:56 oldest is 28. And my twins are 19. And I have a 25 year old daughter.

Scott Benner 03:02 Wow. Yeah. Why is that freaking me out? Give me a second. I'm doing good dentists. Two takes me to 10 and then six more.

Unknown Speaker 03:11 I was 28 when I had my first one. He's 28. Thank you.

Scott Benner 03:14 Yeah. And I was doing okay. Whoa. 20 plus 2266.

Unknown Speaker 03:18 I know. Yeah. Cool. Yeah. Well, it's.

Scott Benner 03:21 It's cool. It's pretty predictable. Kelly, and I'm not sure why I didn't see

Unknown Speaker 03:27 the math girl. So

Scott Benner 03:28 you were 28 when you had your first. Oh, yeah. Wow. How about that? Yeah, that seems so that's young. But seems late to me because of how young I was. How old were you? Oh, gosh, we'll call it 22. And I'm 51. So he was born in 2091. I was 20. Actually, what am I doing? I was 29 when he was born. So I don't know why this is striking me this way. Probably because of my loose understanding of mathematics.

Unknown Speaker 04:01 There you go. I still count on my fingers. It's good.

Scott Benner 04:04 I was just counting on my fingers just now. Kelly.

Unknown Speaker 04:07 I literally majored in math in college and I count on my fingers.

Scott Benner 04:10 Did you really what was your major? Math, just mathematics? Yes. That's hilarious. Okay. It is sunny. So you said there was other autoimmune in your family? What was it?

Unknown Speaker 04:24 Well, at the time my mom had vitiligo and then my daughter at the time that I was diagnosed, she had just been diagnosed about a year before with lupus. She was about 17 when she was diagnosed, and then I was diagnosed with Hashimotos. About three months before I started having the issues with type one.

Scott Benner 04:51 Okay. All right. So there was an How old's your daughter now? The one with lupus 25 Has that change? arranged for her it all over those years.

Unknown Speaker 05:03 Yes. So so well, you know, it's interesting because I have a son who I think has something lurking. We don't know what it is yet. It's just she flares a lot more often. She's a nurse. She's in nurse practitioner school right now. And, you know, she's just exhausted a lot. And it was she was always kind of in that way, even in college, you know, she'd get all ready to go out. And I'd be like, I can't go. You know, I mean, it really, you've heard that spin analogy, I'm sure. I mean, that really was true for her. But now, if she has a long weekend, or you know, goes too hard, she's in bed. So it's tough to be her age and be that sick.

Scott Benner 05:47 She doesn't have a thyroid issue at all.

Unknown Speaker 05:50 Nothing diagnosed, she has some food. Allergies, I would say definitely not diagnosed allergy, but like, makes her so incredibly sick. The second it touches her mouth, so whatever you want to call that. And so it was one of my son's so

Scott Benner 06:07 I get a fair amount of allergies. But has her thyroid been tested?

Unknown Speaker 06:12 You know, I do not know and I'm going to ask her that question. I would

Scott Benner 06:16 love to know that. Okay, I will find out I would like to know if her TSH is over about two 2.1. And if it is I'd like somebody to treat her for thyroid issues and consider giving her a T three supplement if the T four doesn't bring her energy back.

Unknown Speaker 06:32 Okay, I don't have her chat. Or you know, my son who has the energy issues as well. His thyroid was checking it's normal.

Scott Benner 06:40 So you have to be careful about what that means. Oh, I know. Because the doctor will tell you it's in range. But that doesn't mean anything like hold on a second thyroid. normal range. I'm googling. Yeah, it's

Unknown Speaker 06:56 like point on your TSH. It's like point three to five. It's a pretty big range their minds point four.

Scott Benner 07:03 Yeah. And then I just I don't know. Like, I think that I think that a lot of doctors do the it's in range thing and your thyroids four or five, that's not enough medication. Like you're not taking enough medication if you if you're if yours is 4.4 point for your towards hyper. Right now I am I see. So your medication is too strong.

Unknown Speaker 07:32 I don't have any medication. So that's the thing. So I was on thyroid medicine back in my 20s. And then when I was pregnant with my son, they took me off of it. So 28 years ago, I have not been on medicine for 28 years. And so that was an endocrinologist that took me off of it. And so then all these years, it was just sometimes it's high. Sometimes it's slow. I mean, I just kind of would would go back and forth. So finally got diagnosed with Hashimotos. Well, my number and every time I go is like you're in range, you're in range. Well, I have huge goiter, I've got probably 10 nodules. You know, they're like nine millimeters, eight millimeters, seven and a half. I mean, like big ones. And they do the biopsies and all that stuff, but they don't ever do anything to treat it. So used to be like point eight and like, if you look at my trend, it's getting lower and lower.

Scott Benner 08:33 And they never talked about addressing the thyroid.

Unknown Speaker 08:37 No, I mean, like guys retired, not retiring, but he's switching over to the VA and I'm getting a new one starting next month. But no, and I'm like what I've read says that it's working harder and harder and getting bigger and bigger. I look like Jeremiah bullfrog is not that bad, but

Scott Benner 08:57 like I have a bombastic picture, Scott, I'm sorry.

Unknown Speaker 09:03 It's noticeable. It's just and you know, it's getting bigger to stay in range, and it's about to pop out of range. And then I don't know what they do.

Scott Benner 09:12 Yeah, I don't know, either. But make sure you come back on the podcast after you find out okay, Kelly,

Unknown Speaker 09:17 I will do that.

Scott Benner 09:19 So alright, so you've got some sleepy kids and some kids who don't eat something's because they have bad allergic reactions. Thank you kids. Yeah, same to kids. And then you are 49 when you're diagnosed with type one.

Unknown Speaker 09:34 Yes. And I had meningitis. How

Scott Benner 09:38 do you live in a sewer system? How did you get meningitis?

Unknown Speaker 09:43 I was in Mexico and I don't really know because my I'm not married anymore. But my husband at the time and he didn't get sick. But everybody on that trip that we met you know you kind of meet people at the pool and you get to be friends with people whatever. Everybody He had something weird going on on that trip. None of it was the same, but just weird stuff that I remember. And yeah, I came back and thought it was a migraine took my medicine next day took more medicine. Yeah, took three rounds of a trip tan. And it was my daughter's graduation from high school and we were hosting a party and, you know, off I went to the party, and then it came home and started running a fever. And you know, they figured out it was meningitis. So

Scott Benner 10:25 can you hold on one second? Yeah, this segment of the Juicebox Podcast is brought to you by the Mexican travel Council. Good. No, I'm just kidding. How ironic is your problem. Now? I was just being sarcastic because oh my god, you got meningitis and Mexico.

Unknown Speaker 10:42 I know, right? Viral? nonbacterial I'd probably be dead. But yeah.

Scott Benner 10:47 Okay. Jesus. You're, by the way, if people want to sponsor segments of the podcast, please contact me. I feel like I would do. That would have been hilarious. Imagine if you're in the middle of a conversation. I'm just like, can you hold on one second? Do you need a Casper mattress? Are you tired like Kelly's daughter I Casper mattress? I could see this working please get a hold of? No. Okay, so the meningitis How long did that take to to deal with?

Unknown Speaker 11:18 Um, what was in the hospital for several days. I actually wish the er the first time. My husband at the time was like, oh, we'll just take her home. She's fine. So I came home. And then he got up, went to work the next day and get any of my meds for me. And so then I was really sick that next day and went back to the doctor, and then that's when they admitted me. I think I was there. Three or four nights. And then, you know, they sent me back home and it was okay. I mean, you know,

Scott Benner 11:52 what's the chances that your ex got either meningitis on purpose? percentage wise?

Unknown Speaker 11:58 Probably not. But okay.

Scott Benner 12:02 I like by the way, how long have you been divorced?

Unknown Speaker 12:06 Officially since February?

Scott Benner 12:08 Oh, wow. How long? Have you been six months? Were you separated before that for long? Just like three months. Okay. All right. Because I read about

Unknown Speaker 12:15 a year ago that he had, like, it was like the end of October. I was like, I can't do this.

Scott Benner 12:19 I say does that have anything to do with the health stuff?

Unknown Speaker 12:22 Um you been mean getting sick?

Scott Benner 12:28 I mean, that that? Was there something about you having issues that that impact because you guys must have been married forever, right?

Unknown Speaker 12:36 We are married 20 years I had was married previously, when I had my first two my older two kids. Okay, we married had twins. And we were married 20 years. And ya know that my health issues had nothing to do with us getting divorced, but I'm not gonna say they didn't probably lead to me. Not feeling so good sometimes.

Scott Benner 12:58 So I don't want to make you feel badly. But I feel like I need to ask you. So how would the health stuff impact a relationship? There's a good question.

Unknown Speaker 13:09 Um, I think if you are a sick person, you know, where you have a sick mentality. I think that could really wear on a relationship. You know, if you're always complaining, always tired always. You know, whatever, which is not my personality. He literally would say, I forget that you're a type one. I mean, he literally knew nothing about my really my disease or how it worked. Because I just do it.

Scott Benner 13:40 So, but you didn't feel well. And that impacted your personality. Oh, no, no, no,

Unknown Speaker 13:46 I'm saying I think that could for somebody. No, it didn't impact mine at all. No, it had nothing to do with our separation and divorce.

Scott Benner 13:54 Gotcha. Okay. Yeah. Thank you. No. All right. Sorry. I was

Unknown Speaker 14:00 No, I just raised four kids and I didn't need to raise a fifth one. You know, I kind of got tired of

Scott Benner 14:09 oh, all of us. Life is so cyclical, isn't it? Like, like, it's just it's amazing. There's a moment when just when we want to make a family, and you'll look right through things like that. You're like, you know what? This person has a job that reasonable. No one's ever hit me. He's handsome. Let's do it. And then later, you're like, all that stuff. I overlooked. I do not like this anymore. But we're raising these kids. So I'm gonna ignore it.

Unknown Speaker 14:37 I'm gonna stick it out. Yeah, exactly, then

Scott Benner 14:41 it's not uncommon. Hmm. So did did this correspond with your last kid going to college in some way?

Unknown Speaker 14:47 The twins? Yes. Well, it was it was their senior year in high school. And it was kind of the straw that broke the camel's back kind of situation. And I was like, if I don't do it now, it may not happen. I'm just gonna do it so I kind of felt bad for that or did feel bad for them because it was just senior year but I think overall it worked out well for them and

Scott Benner 15:08 Did you say something like I'm getting you something for graduation? It's extra space in the garage? Yes, exactly. We can watch whatever we want on Sundays again everybody. Super nice free. Yeah frigerators full I'm sorry for the dissolution of your marriage. I feel badly about it. But I didn't know it was good marriages

Unknown Speaker 15:29 don't end. Well, but my mind weren't great ones.

Scott Benner 15:40 Kelly, are you afraid that the next person you look at and say hey, would you like to get dinner's just like, are you not good at picking people?

Unknown Speaker 15:48 I suck at picking people. Why? What happened? Very consistent. Like I like narcissistic personalities.

Scott Benner 15:54 Tell me why. What I

Unknown Speaker 15:56 got I don't know why.

Scott Benner 16:00 So I want to try to find out together. sure that you never Googled it.

Unknown Speaker 16:09 Doing this again. So I find it irrelevant.

Scott Benner 16:11 Versus this user rate. I know what a narcissist says, Why would I be attracted to one? Oh, would you consider yourself to be strong, confident and self assured? Yes. narcissists are often attracted to strong, confident and self assured women. Oh, yeah. This may seem counterintuitive. It is important to realize that the narcissist traits of grandiosity and confidence are really a mask for deep insecurity. So they want your

Unknown Speaker 16:42 Okay, so they want to suck the life out of you.

Scott Benner 16:45 Oh, no, Kelly, that is not what this says. Now, if we're if we're believing psychology today.com, which I don't see why we shouldn't. The idea is, is that that narcissistic behavior is a facade, because they don't feel that strong. And so they want to surround themselves with people who do. It's interesting. It's interesting. Anyway, let's be honest, it's all about sex. I don't care if anybody's narcissistic or not. You don't I mean, if you're on a good schedule, you'll be okay. All right. All right. So what was it like getting diabetes at this age?

Unknown Speaker 17:31 Um, it was. It was interesting. Um, you know, it was kind of one of those things that you just do you know what I mean? Like, you don't really have a choice. I think that's the, if you want to call it the beauty of type one, you don't have a choice. But to address it head on versus type two, I think a lot of times, people talk themselves out of taking care of themselves. So you know, I kind of dove in headfirst. There wasn't a lot of education. There wasn't a podcast, there wasn't. I was on like some online forum at one point. And I think I had about an hour education at my doctor's office. I wasn't in DKA. So, you know, I actually got diagnosed at my physical. And, you know, I mentioned I'd had the Hashimotos. And I started taking medicine, and I was like, Oh, my God, I'm finally losing weight. This is so exciting. You know, and I hadn't quite put together that I was also going to the bathroom all night long and drinking a ton of water. So, you know, I kind of got diagnosed in the office, so they should have picked it up. But they didn't feel like I went in from my nurse appointment. And then that week, I lost seven pounds. So when I went back in for the follow up with a doctor, he's like, uh, you have type two diabetes. I'm like, Oh, darn. Okay. You know, I mean, I didn't know any different. And so that was for, like, a week that I thought I had type two. And I called a friend of mine, well, actually, my ex husband's in pharmaceutical sales. So he wanted me to talk to an endocrinologist that his group called on. So I called and they said, we can get you in in six months. I'm thinking, Well, we did in six months. That's not going to be very helpful. So then I called a friend of mine, whose son, and that son whose daughter goes to school with my twins, and she's an endocrinologist. So she said, well come in tomorrow. And I said, Well, I'm leaving to go out of town. So I was going out of town. I came back a week later, and that's when I saw her and the other doctor called me as I was on the airplane. And he said, You're supposed to be in my office today, but my nurse never called to tell you. So I went and saw both of them within 24 hours and had the same diagnosis from both And it was the positive ketones and I can't remember what else they use at that point. But then they ran the lab tests for the C peptide and all that stuff.

Scott Benner 20:11 So are you telling me that? You, I feel like what you said a minute ago, I want to go back to which was the because type two can impact you and kill you in the moment that it's possible to just ignore it for a while, or to not take it as seriously as you should right away, but type one demands of you that you pay attention immediately. And so you did. And so you didn't have a choice, which, you know, some people still choose to ignore it. But, but So you felt like you didn't have a choice? And is it because of that, that you have this attitude about? Or do you think it's your life experience that allows you to feel this way or because you're, you're not I mean, you're really treating it like, oh, geez, now we got to paint this room I go paint this room now.

Unknown Speaker 20:58 That's kind of how I treat light.

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Unknown Speaker 26:03 I parents taught me early on.

Scott Benner 26:06 Kelly we had we had a little bit of a an audio lag. I'm sorry, you. I heard you say that's how I treat life?

Unknown Speaker 26:12 It is yeah. I think I learned early on from my parents that there's just certain things you can control and things that you can't. And if you can't control it, there's no point in stressing and worrying over it. You just need to deal with it. It's good advice. So that's just kind of how I was raised that we don't you know, lament over things that we can't change.

Scott Benner 26:38 Do you have any kind of like psychological burdens from it? Like, I know you're dealing with it in the day, and you're taking care of it? You know, the light of day, obviously, but does it weigh on you in the back of your mind?

Unknown Speaker 26:54 Um, not terribly not as much as it probably should. You know, this morning at 5am. I had 41 double arrows down. That was a little scary. But no, I mean, I live alone now because my boys just set for college. And that stresses my circle out a lot. So I'm getting a service dog. Because that will make everybody feel better. I tend to have my lows more in the evenings at night when I'm home alone because I'm real active in the daytime.

Scott Benner 27:25 Buying a dog you don't want so that your kids don't worry.

Unknown Speaker 27:29 It's my mom and my best friend. No, I want a dog. I love dogs. I love them. It's a great excuse to have one. Yeah. But um, no, I just I don't worry about it probably as much as I should. I mean, I'm I don't know. I mean, it is what it is, I guess, yellow every night. No, but I played like yesterday, I played two tennis matches, and one at 10 in the morning. And then one. You know, it finished almost 930 last night and it was an hour, two and a half hour match. So, you know, I knew it was probably gonna go low. And then I didn't and I was like, Oh, just as great. I woke up it was at like 112 and five this morning. I'm like, Oh, perfect. And I got back in bed. And then within a few minutes, it was like 44 double arrows and like

Scott Benner 28:16 maybe maybe you woke up. Maybe your body felt that fall before the CGM could catch it. That has been happening a little bit lately. Yeah. So you're happening to you're falling faster? Yeah. What's your you wanna say?

Unknown Speaker 28:29 6.5?

Scott Benner 28:31 And how about your variability? What do you shoot for? What's your range?

Unknown Speaker 28:35 Well, my time range is not as good as I would like it to be, but it's like 70 to 130 is pretty much my goal. But I do have like a 40 point swing, it seems like and I'd like that to be a smaller number

Scott Benner 28:50 you see 170 more often than you want.

Unknown Speaker 28:55 Is that data is just like on the graphs, you know, it tells you like your standard deviation. Mine's like 40 something. Oh,

Scott Benner 29:02 okay. Yeah. So you're bouncing around a little bit. Yeah. So why do you think that is?

Unknown Speaker 29:10 Because I don't pay quite as much attention as I should.

Scott Benner 29:14 Does that mean you don't Pre-Bolus your meals or does that mean as it's going up? You don't do anything about it?

Unknown Speaker 29:20 Um, I Pre-Bolus not always as much as I should. It seems like when I do Pre-Bolus Like I've been working on that more because I'm like, oh get on the podcast is gonna ask if I'm Pre-Bolus and then I'll drop low in the My mom's like, Oh my God, what's going on? And I'm like, Well, you know what, it just doesn't always work the way you want it to how long? Oh, it'll go like into like the 50s or 60s. And you know, which isn't the end of the world.

Scott Benner 29:49 So when you so when you Pre-Bolus a meal and you get into the 50s or 60s What like while you were getting to eat Do you ever spike after that?

Unknown Speaker 30:00 Um, think about it. Um, no, not really. I mean, it keeps me lower. I haven't done the Basal tests you tell us we should do because I'm on the control IQ and I don't know how to Basal tests on it.

Scott Benner 30:14 Well, you can you just shut the control IQ part off and just use it like a regular pump. Oh, yeah, probably. So yeah. And then just do it. We just did this, Martin. So, Kelly, do you mind me telling you a story here?

Unknown Speaker 30:27 Yes. I'd love to hear sir.

Scott Benner 30:28 Let me just drink a little water. So Arden left for the college last week. And how are you? I mean, it was easier than when I took my son. I think I had some perspective. I knew what it was going to feel like. And I almost cried in the shower on the first day in the hotel when we dropped her because we stayed a couple of days, because she's so far away. Right? And I didn't I sucked it back in. And I thought I'll just save this for the day we leave, you know. And then when we were standing in a room saying goodbye to her, I, I cried then, and I tried to tell her something. But every time I tried to speak I would cry. So I just I just sort of said to her, I was hugging her. And I said I want to tell you something, but I can't because I can't stop crying. So I just so we we left and my my biggest battle was as we drove away, I fought the um, I got a real big adrenaline kick. Like I was doing the wrong thing. Do you know what I mean? Like I should go get her or stay with her like that feeling. And then I had to fight through that adrenaline and we had two cars. And my son was with me and my wife Kelly was driving the other car. And, and Cole was driving. And he's like, are you alright? And I said, Have you ever been so angry? You've cried? And he said yes. And I go, I'm not angry. But I'm not sad at the moment either. Like, I'm literally like fighting off that adrenaline feeling like I'm so jacked up. I'm upset. Oh, he's like, he's like what would fix it? I was like, it would fix it if you would drive back there. And we would live with Arden. Or I was like, just keep going. But it lasted for a little while and then you know it passed. We talked to her last night. She's doing terrific. But the reason I bring all this up is because and I'll talk about it in another episode. But we figured something out about Arden's digestion. I don't know why, um, let me clear my throat. I apologize. We figured something out about Arden's digestion. But we only figured it out a few weeks before she left for school. And it was something she had been struggling with for years. And the thing we did, which again I'll talk about in another episode probably will come up long before you hear this one. It changed her insulin needs significantly. And so over the month that we were doing this thing I was seeing her insulin needs change seeing her insulin needs change. And as her stomach was kind of healing. This is my expectation. Her insulin needs became less and less, I'm assuming because food was flowing through her more efficiently. So by the time we got to the trip to Georgia, which took 14 hours in the car, she was on the lower side the day we drove down. But we were very sedentary. Like you know, obviously sitting still and you know car rides, generally long haul rides, people's blood sugars go up. Right? I remember thinking on the way down it's so weird that her blood sugar's are good in this car ride like this. Because I thought for sure we were gonna have to give her more insulin for the ride. So we get there. And then that overnight, her blood sugars are a little low. We had trouble bringing them up. The next day. They were on the low side that night. She goes to bed for the first time in her dorm room. And you have to imagine all I wanted for was to not have problems with her diabetes on the first day, you know, right, right. I just I didn't want that for we're only up the block in a hotel. And her blood sugar got low and stayed low all night long. Like we were up texting all night, like drink this, do that to the point where at like four o'clock, she's like, why is this happening? And I said I think we need to like reassess all of your settings. Because you just don't seem like you need this insulin anymore. So the next day we got up. I thought about it for a while it texted Jenny I was like this is what I'm thinking does this make sense? And she's like it does Okay, and I picked a static Basal rate, I ordinance looping again with with Omni pod, I opened the loop and created just a regular insulin pump situation. I put her Basal lower than I thought it would even need. And then I watched it for the morning and Arden throughout that morning through, you know, traveling around shopping at Target for things, you know, etc, getting a room, you know, buying extra stuff for her room. Her blood sugar was very, very steady at 110 with a point five an hour Basal rate. Wow, the two days before that Arden's Basal rate during the day was 1.1. So I was like, Okay, I'm gonna guess that somewhere in here, point six, maybe would be a good basil for her because she was holding it 110 I don't want her to sit at 110, I might make a point 6.7 In that range somewhere. And then we we picked, I looked at her insulin to carb ratio, which is aggressive at four and a half, four and a half, yeah, four and a half carbs for each unit. And I was like, Well, this is probably wrong, too. So I just changed it to 10. And I said, we're going to Bolus a couple of meals and see what happens. The part that, like was bizarre was that after we had a higher blood sugar that we had to correct, we corrected it, you know, to see what we thought maybe her insulin sensitivity was. So I think she was like 160 or so. And I was like, give yourself a unit, we're just gonna let this play out for the next three hours. Like I don't care what your blood sugar does, I want to watch it. And I ended up setting her insulin sensitivity at 70, from four from 42. So now all of a sudden, I've got these settings, point five and our one unit per 10 carbs 70 insulin sensitivity instead of 42. And I was like, alright, let's look at what happened here. So we did another meal Bolus. It didn't work, we needed a correction. I figured the I took the the amount that that the correction use to get our level again. At that point, I think I closed the loop, I let the loop fix a a meal rise that I took the amount of insulin the loop used to correct the meal rise. And I you know, reverse engineered it to get it into her insulin to carb ratio. And I ended up making her insulin to carb ratio, something like I forget what it is right now. Seven, six or seven in that range. And then her blood sugar for the next three days was insanely good. Super stable. No lows, overnight. Terrific. But but look at how much it changed just because foods not sitting in her stomach anymore. After she eats, and she's going to the bathroom on a better schedule.

Unknown Speaker 38:07 That's interesting, because I do have some digestion issues. So that very well could play a part. I need to look into that. Yeah.

Scott Benner 38:15 So what we ended up doing for all the things and like I said, I'll make an episode about it. But just to bring it all into context here. I won't give you the big story. But what ended up happening was, is that Arden stomach hurt for years, like she's always like, my stomach hurts. My stomach hurts. She started having these weird like, I can't eat this. I don't want that I'm hungry today. I'm not hungry. That's my son. Yeah, go into the bathroom intermittently a couple times a week if she's lucky. Like that kind of stuff. So we tried going like the normal medicine. Well, first of all, in fairness. We tested and did everything under the sun that a person with autoimmune diseases would do. Nothing came back positive. So eventually we go kind of the normal medicine route. We take her to a gastro, he looks down on her stomach and says, you know, there's still food here from last night. And I was like, oh, geez, and he goes and there's a lot of inflammation in her stomach. And he took some biopsies and there was no h pylori, which I guess is something they look for. And he looks at us and says here and he starts giving us all this medication. This is for the pain. This is for this that I'm like, my, like my 18 year old is gonna take like three medications for stomach pain. I'm like, What the hell are we doing? You know, like, this doesn't make any sense. And then he says, she has gastroparesis. And I go and I go, No, she doesn't. Like I see her insulin. I know how her insulin works. I know what happens when you have gastroparesis. This is not that. And he goes well, that's a it's a term we use. And I said well in the diabetes community, it's not working throw around. Okay. I was like, yeah. And he goes, this guy knows nothing about diabetes. He goes, Well, she could have it. And I was like, well, she doesn't because because she doesn't like I'm like, I, I've never once given Arden insulin, and she's crashed because Her stomach's not digesting. I'm like, she, her digestion is slow. She has gastritis right now, which she's probably had for years. And I was like, and we need to heal her stomach to get past this. And he goes, Well, I'm here, do this gastro precess diet, which was like, don't eat anything wrong. Nothing was skin. No meat, like, you know, nothing that digests slowly. And he goes, and this will heal her stomach over time. And I was like, how much time and you know, so we start doing it. A month before Arden's gonna leave for college, when she's on this restrictive diet, she's absolutely miserable. It is not fixing anything that I can tell. And at least not fast enough, because she's gonna leave for school in a month. And I'm like, all I'm saying to myself is there is no way that given the choice between this diet and stomach pain, Arden's gonna choose stomach pain, like she's not going to do this, if she's not with us, you know, right. So we're like, a week or so into this restrictive diet, and she just wakes up, and she obviously was beginning to feel a little better because she craved a hamburger. And so she was hungry. She's like that I would love a cheeseburger. And I was like, okay. If you do that, that's something for me. And so we talked about a little bit, we drove to a health food store. And I said to the lovely lady there, I want some digestive enzymes, something that helped break my daughter's food down. And she gave me something and I was like, great, and, and we laughed, and I said, Alright, eat your cheeseburger. Take two of these pills. She takes two of the pills, eats her cheeseburger, blood sugar never goes over 110 It was five guys. It was fries. It was I love five guys. It was a milkshake. And it was a cheeseburger. She ate it all her blood sugar didn't spike. And better than that. Her stomach didn't hurt. Interesting. And the next day, she went to the bathroom. Now she got very annoyed with me asking her everyday if she had pooped that she did not like, Dad, I am not telling you if I pooped, blah, blah, blah, etc.

Unknown Speaker 42:19 I can tell from your blood sugar.

Scott Benner 42:21 No, don't worry, I know. And so she, she, I have to basically keep after to take these pills for about a week. Well, about a week into it. She goes to have a meal. And she says to me, Hey, where are those digestive enzymes at? And I said to my wife, I was like, Oh, this is working? Like she's she knows it's working because she's asking for them versus us being like, hey, don't forget your eating take these. Before you knew it, she bought herself a pillowcase and started traveling with them.

Unknown Speaker 42:51 We are in advanced does she take them? Just take some

Scott Benner 42:54 washes even. Okay, just pops it in. Or afterwards. Take them right after it's fine. Okay, close. Yeah. So. So then, you know, a week or two went out on like, you know, you're still not going to the bathroom as much as I want you to. And we added magnesium oxide. Is that right? Hold on a second.

Unknown Speaker 43:11 There's a couple that you can do. Yeah,

Scott Benner 43:14 but there's not though if you talk to the Russian lady at the health food store, so hello. So yeah, so the woman's like, you'll take magnesium. She looks at Arden because now you know, Arden went from the first time we went to the health food store while we were on our way to the cheeseburger. Or Arden's like I'm staying in the car. I don't care about this. The next time we went back, she's like, I'm gonna come in with you. I was like, Okay, so now we're talking with the lady. And she says, You're not You're not eliminating I forget how she said it. This is my Russian accent. I don't even know she's Russian. She had a really crazy accent. She's like, you're not eliminating and ordering goes. Not every day. She goes, we will do magnesium. And I said, Oh, we have some at home. And she was it has to be oxide. And I was like, I don't know if I have that. So I'll just buy more. And I didn't so we had tried magnesium in the past, but we tried the wrong blend of it or something like that. Yeah, what do I know about magnesium? So I said, I'm like, Alright, take one of these at night. See what happens. And she started going to the bathroom on a better schedule. And so digestive enzymes. I'm so sorry. I can't clear my throat today. Digestive enzymes for the for the her digestion, this magnesium oxide to make poopies and everything is just rolling along now.

Unknown Speaker 44:45 And she needs less insulin,

Scott Benner 44:46 significantly less insulin. Thank you interesting. Half I mean her her insulin sensitivity from 43 to 70. I might adjust it a little. I'm watching it today. And today I'm not certain If we excuse me, I'm not certain if we have I'm looking at her blood sugar. You just heard Nightscout there for a second. I'm not sure if we have a bad site right now. Or if the settings need a little bit of adjustment now that classes have begun, right? Because I think she's getting she's got a little bit of that school adrenalin enter. So I'm looking at that. She just had a pretty big meal. And her blood sugar staying super stable around 140. So I think I think we need to move a couple of things at them. Sorry. Give me a second. So I think we might be making some adjustments. But anyway, the digestion thing is huge.

Unknown Speaker 45:54 Yeah, that's interesting. Okay, well, and I take his Olympic.

Scott Benner 45:57 Okay, does that keep it moving? or slow it down? That slows

Unknown Speaker 46:01 it down? Yeah,

Scott Benner 46:06 why are you taking him out?

Unknown Speaker 46:08 Well, when I was first diagnosed, I don't know when I started it. It's been like, two years ago, maybe my ANC was like in the low 70s. And I just could not get it lower. And I gained weight. And I was having a hard time getting, you know, like, nothing was moving the scale. And so my doctor put me on it. And it was, it was hard to titrate up, I will tell you, it made me really sick. And now knowing what I know, it was actually gastroparesis type symptoms I was having. But I didn't really know that at the time. And yeah, I mean, it curbs my appetite. So I'm not hungry. And I just take it once a week. I don't even really think about it. It's probably not I don't know if it's a bad thing to take long term. But I mean, maybe once these lower and I'm not hungry, and I lost weight. So it kind of makes me feel happy. But

Scott Benner 47:00 when the doctor brought it up was were they saying things like insulin resistant?

Unknown Speaker 47:06 No, they didn't say any of that. He just said, you know, we have a medication we give to type twos. We can try it. He said it helps with with weight loss and will lower your agency. We didn't call it insulin resistance.

Scott Benner 47:20 Instead of metformin Was that ever said?

Unknown Speaker 47:23 No. They tried to put me in that form in that like first week that I was diagnosed, you know, and then when they figured out it was type one and not type two, they they took it away, okay, because

Scott Benner 47:33 the reason I asked is because while this was all going on with Arden you know, we've been talking with Addy, who's the lady who did the thyroid episode with me, who is Arden's endo for I don't know. She's Ardens endo for a lot of stuff. Although technically Ardens endo is the Children's Hospital. But anyway. So we're talking to Addy and she's like, Listen, you know, if this next thing you try here with her stomach doesn't help. I think we should put her on Metformin. And I was like, really? And she goes, Yeah, I'm like wine, because she's like, well, so Arden also had this, like really bad acne. Like, like for years that she just couldn't make anything. Like she just couldn't get rid of it. Right. And what ended up helping that was getting the spelling which we're going to talk about on the podcast. Okay, so we had gotten down to being like this ardonagh of PCOS like what's going

Unknown Speaker 48:36 on? My friend's daughter has that form and really helped her. Okay,

Scott Benner 48:41 so we began using a vast a tall it's a over the counter. Drug, not drug it's a powder. I don't know what the hell, okay. And she uses like, a scoop of it a day. dissolve it in water or another drink. And you drink it.

Unknown Speaker 49:07 And what's it for?

Scott Benner 49:09 Listen to me, Kelly. I don't know. I was just told I was told. Try this, right. And I'm like, Okay, so I'm trying to find what's in it right now for you because it's a very simple

Unknown Speaker 49:21 and if it was for her acne or was for we don't know why we?

Scott Benner 49:25 Well, it was because we had gone through everything else that could possibly be wrong with art and in the world. And we all just landed on it seems like she has a hormonal imbalance, right? Because that nothing else made sense. Arden's periods were 11 or 12 days long. She'd get a two day break in between them. The her bleeding was incredibly heavy. She'd get a bloody nose out of nowhere like her to hurt her acne was terrible. She went on a pill the pill not upheld the pill and it did not touch the acne. She gained weight because of the pill. It did shorten her periods and stop the nosebleeds.

Unknown Speaker 50:08 So we wrote the Gardasil vaccine.

Scott Benner 50:11 No, we didn't give that to her. Okay. That's the one for HPV. Yeah, she didn't have that one.

Unknown Speaker 50:20 That one can cause some hormonal issues. Yeah. We told her

Scott Benner 50:23 we just had no oral sex. No, he didn't say just just didn't do it. And so So anyway, so you know, before we try Metformin, let's try this over the counter thing this Avast at all. So she's on it for a month, and things are looking better. And then all of a sudden, six weeks into it, she gets her first, you know, she gets her period. And we're like, all of us have like, our fingers crossed, and her period is shorter than it usually is, had stopped. And now we're just watching it like God, it's not gonna start again, right, and it didn't start again. And then the next month, her period was a regular amount of time, and the nosebleed stop. And then the third month, her period was the regular amount of time. And we were like, Holy hell, this powder is it seems to have like, fixed her. I don't even know another way to say it really? Like, it fixed her. Yeah, and her and her acne started to trend in the right direction. We're like, Alright, cool. Let's keep doing this. But her stomach still hurt. Like, none of that was going away. And you know, and that's tough. Because when you have these problems, you're like, Oh my God, look, they're all like, so many of the problems are getting better. But then this part didn't like holy shit. Just like Oh, come on. Like, really? You know what I mean? So that's when we did the endoscopy to look in her stomach. avasta tall. Am I saying that right? I should say it right of acid tall. Has my oh. Oh God in us the tall in it. And D Chiro in a subtle so it's m y O dash N I O S it O L and D dash c h I r O dash i n o s i t Oh, that's what these two things are. I couldn't be okay, our house we call it uterus water. We also call it lady water. And her friends caught her vagina juice. So sometimes the her friends would pick up her glass and drink and and be like, Yo, my, my uterus water is in there. And they're like, I want my uterus to be better too. And you know, they just anyway, so who knows this thing, this powder just straightened Arden's life out 85% And then the enzymes at the meal, seemed like it was the rest of it and the magnesium to make the poopy. So

Unknown Speaker 53:06 I'm on some of that for myself. And for one of my kids who's having still has issues undiagnosed. So my boys,

Scott Benner 53:14 when this starts with her, I think, you know, gosh, a lot of what happens to Arden with food in the bathroom. I've noticed that through my life as well. So in the beginning, when she was taking the enzymes, I'm like, Look, I'll take them with you. And I've had to take for years, I've had to take fiber to kind of help my

Unknown Speaker 53:35 process. I remember hearing about that because you couldn't get it during COVID

Scott Benner 53:39 and I don't need the fiber now if I do the enzymes. Interesting. Okay. Okay, so I was like, alright, so on the ride home from college, my son and I were talking about it, my son goes, I'll try that. And I was like, okay, so I went out yesterday and bought him a bunch of enzymes and I said here just take take these when you eat

Unknown Speaker 53:58 or email me a picture of it when we get off so I know exactly which ones to go by.

Scott Benner 54:01 I got one. So I got one from our local health food store, which I think is just made by them. And I've also used the one by pure pure makes them right okay. And those are the only two that I've seen so far. And they've both poor encapsulations digestive enzymes Ultra. I started using and then I just decided if my daughter is going to use these other ones I'll just use those so I'm just using the ones from hers and I don't know if everybody has like a black forest acres health food store near them, but I'm using their their in house product. Gotcha. Okay, called Super Zaanse.

Unknown Speaker 54:45 And it was magnesium oxide, not the Yes, calcium or whatever that one is.

Scott Benner 54:49 And that's just once a day. And I hadn't taken it at all. I was like, I don't need that. But yesterday I was like, whatever. I'm gonna do everything she's doing so I know how it's impacting her. And I did notice at work yesterday with some exuberates.

Unknown Speaker 55:07 So you take it at night or in the morning,

Scott Benner 55:09 you're gonna have to figure that out yourself. Kelly, I'm not a doctor, nothing.

Unknown Speaker 55:13 Oh, now you're not

Scott Benner 55:15 telling you what I'm doing. I can't give you different now I don't know, I

Unknown Speaker 55:18 see you taking it day or night.

Scott Benner 55:20 I took it during the day yesterday, and it made me it made me say to myself tomorrow, I'm going to take it at night. Some of the traits and I when I go to bed instead of during the day today, I'm on it, I'm on it. But anyway, here's the real thing, right? Like all this, you hear us talking about on all the time, how you're balancing, you know, the axon to actually the insulin against the impact of the carbs. And the impact of the carbs really means the carbs that are in your body. As your body is leeching out, you know, the sugar and it's going into your, into your bloodstream. That that availability, that food availability, has a lot to do with how long it's in your stomach and how long it digests, right? Think about pizza, and or fat rise or all that stuff? Like what would happen if food just moved through you more quickly? And is there? And this is the first time on to sound like a hippie, I think but is there a relationship between diabetes or thyroid stuff or whatever? And how long your foods taken to get out of you? Right? Right. So I don't want to cause a run on digestive enzymes. But for 20 bucks. It's worth trying. Absolutely. Yeah. So I got all right over here trying to fix the my daughter, and maybe somebody else would benefit from it too.

Unknown Speaker 56:41 Absolutely. Well, I mean, I've been going down this rabbit trail for five or six years with one of my boys. And then finally they said he had SIBO, which is small intestinal bacterial overgrowth, and that was the functional medicine doctor and the GI doctor came to the same conclusion at same time or pretty close. So one was doing alternative med stuff on him and he was starting to feel better. By the time the GI doctor said it was SIBO. And they give him the antibiotic things called Zafran. And so to the x xi, or XYF, five Arn or something. Anyway, it stays contained in the colon, or in the intestines, all the way through, it doesn't leach out into your body. And that that's given him a little relief. But gluten and dairy and soy are horrible for him and gluten and dairy for my daughter. So maybe the digestive enzymes will help.

Scott Benner 57:38 Which we were in Georgia for five days, maybe. So we were supposed to say we I think we got down there on Tuesday night. We all stayed in the hotel Wednesday, we moved on into a room Wednesday night was the first night Arden stayed in her dorm. We stayed Wednesday night, Thursday night, Friday night, we were gonna stay Saturday night and then go home Sunday. But we said kind of realized on Saturday afternoon, like we're going to get up early in the morning. And we're not going to sear in early in the morning. And, and she's got homework tonight and everything already. So we're not going to see her tonight. So we said goodbye to her on Saturday afternoon. And we got back to the hotel and my wife's like, I need to get out of here. Yes, like I can't just sit here with her being three blocks away. And I'm not going to talk to her and I'm not going to see her. She's like I need this process to start I need to leave. So we just jumped in the car and went but my point is is that I was there like four or five nights. And my I need to find a better word for this right? But the process that food goes through me while I'm traveling is not great. And so when I travel or I fly, I'm always like just dosing myself with fiber to keep everything going.

Unknown Speaker 58:52 And most people have that where it's I don't know what the word is. They call it traveler's diarrhea, but that's kind of the opposite. But a lot of people just slow down when they're not home. Nothing works, right? Yeah,

Scott Benner 59:01 well, I and it's definitely the opposite for me. Although I would love to call this episode traveler's diarrhea, but I don't think I can and but let's keep that in mind for future. And so this time I was just like screw it. I'm taking these enzymes when I eat and I am not going to take any fiber and I'm just going to see what happens. And it was was 150% better than it's ever been for me. And I was also not restrictive with how I ate which I'm usually when I travel I stay really light I stay very low carb I eat more like like animal protein stuff like that. And I didn't do that like I had French toast at breakfast one morning with like syrup and powdered sugar on it has like this diabetes group right. Martin had the same breakfast by the way we My mouth

Unknown Speaker 59:50 is watering. Oh no, I eat it all the time. No problems. Just saying you're making a mouthful. I

Scott Benner 59:54 scraped the powdered sugar off that I have to be honest. I don't know what you people are doing in the south but it was like It looked like somebody threw it on with like a fist. That's like they grabbed a handful. And I was like, I am not eating this. And I scraped it off. But, but my point is, I was fine the whole way through. And so was art. And after we just did her settings, so it was her blood sugar. I'll tell you right now, even though I say it constantly, I am doubling down on it settings. Everything is settings. Everything, setting, setting, setting, setting settings, your settings have to be right. Don't go along going. I don't know why I'm getting low. Like Kelly, you shouldn't be getting low after you play tennis. Your settings aren't right. Yeah, tennis

Unknown Speaker 1:00:34 is really hard for me because like, one match, I think it was not yesterday, but the day before I played, and I was high the entire match. The next match I played the next morning. Hi, I missed the entire match. Then that evening, lo the entire match, you know, obviously because I'd already played the two other matches. But like some matches, I'm high some matches. I'm low. And it depends on the heat and the you know how hydrated I am. There's so many factors, aside from just my settings that go into it. But you know, as soon as I think I have it figured out, then something slightly changes like the weather in Oklahoma. But

Scott Benner 1:01:13 Well, I'll tell you, I'm going to share a text I sent to Arden this afternoon. So actually, so like I said, she's been a little high the last like 24 hours at more like the 130s like very stable 130. And so I said to her this morning, Hey, good morning, I said, the pod is struggling to bring your blood sugar down. So let's try and override to get you through your classes. And we did that we moved on loop we made her override like 130% targets of 90 for four hours. It held her right around 120 during her class. And I said, I think now Mike, I think the site's weird. Let's make a Bolus, like let's just throw in insulin to see what happens. She pushes into units. I don't see anything happen. I'm like, Alright, so maybe it's the site. Or maybe it's her basil, you know, is a little weak. Or maybe for instance, sensitivity is a little weak. Like maybe it was great while we were adjusting it in those first couple of days. But now she's getting up but she's going to class, we're going to need to be a little more aggressive. So I sent her this Texas that if the Bolus works well, she just made a meal Bolus. I said, we're going to make adjustments to your insulin sensitivity. If it doesn't, I'm going to think about maybe the site needs to be changed. But that seems odd because it's only been on for about 48 hours. Or maybe you're dehydrated because it's hot there. So like those are the three things that I'm thinking about right now, as I'm watching what's happening to her blood sugar.

Unknown Speaker 1:02:41 You can it's amazing what hydration does, especially when it's so humid here like right now we're only 80 degrees, but the humidity is still really high. So even I played a match when it was 104 and there were women dropping like flies. I'm like I don't know my pancreas doesn't work for my my cooling systems really good. You know, but I was very hydrated. I don't have any problems, but that humidity will suck it right out of you.

Scott Benner 1:03:06 I wonder how much of your hyperthyroidism has to do with you feeling doing well with the heat? Or if it doesn't know, I don't know. I don't know I I am as close to being an autoimmune scientist. Now as I've ever been in my life. I'm so I know.

Unknown Speaker 1:03:22 That's why I was so excited to talk to him like he's gonna help me.

Scott Benner 1:03:26 Listen, we've been chatting away about things we were never going to talk about to do you have questions or things you want to talk about?

Unknown Speaker 1:03:32 No, actually, I was interested in Yeah, kind of your thoughts on the thyroid. And I'm happy to hear about all this digestive stuff, because I think I can think of three people in my immediate clan that are going to be looking at this. So no, that's fantastic.

Scott Benner 1:03:47 When I was like eight or nine years old, I can remember I used to go out with my cousins a lot. And my uncle owned a sheetmetal shop that many years later I ended up working in that was maybe 20 minutes or so from his home. And so he was aware of a pizza joint around the sheetmetal shop that they like. So if I stayed at my cousin's house, we would often drive this 20 minutes to this pizza place, drive past my uncle shop, to the pizza place, have pizza. And inevitably, we'd leave there. And I'd be like, I need you to stop I need to use the bathroom. And so we would stop at his place. A sheet metal shop in the middle of the night, which was creepy as hell. And I'd wander through and use this dirty filthy oh my god, just filthy restroom. And, and then we'd make it to 20 minutes back to his to his house, and then I wouldn't feel good all night. And I remember even as a child being like, my cousin goes into the bathroom. And he's back out in a few minutes. And he's okay. Like, why is like why doesn't that happen for me? You know, and I just struggled my whole life with it. And it just never. It never got better. I think that part of my eating, like the weird way to eat is something that I've adapted to not not to not feeling sick, right, you know, without even knowing it, because all these things we talked about now and, you know, in a modern society like growing up in the 80s, like you just, you were Scott who was in the bathroom, you know what I mean? Like there was nobody was like, I wonder what's wrong with them. There's like, this guy can't handle pizza. It wasn't me. Like, it wasn't any bigger thoughts than that. And so, I mean, I don't know, like, it's had it's had a bad effect on my life. Because if I try to eat more food, that's what my body seems to want. But then I just gained weight, even though I'm not eating very much. And so maybe everything's just sitting in me too long is it's Yeah, is what I'm wondering. So I'm doing the same thing Arden's doing so I'm interested to see what happens to me as well.

Unknown Speaker 1:05:54 So what you mentioned that Foreman So did they put her on Metformin?

Scott Benner 1:05:57 No, because the basketball works so well, because that works so well. She didn't need them that came off the table. That idea that was our next more aggressive step if the basketball didn't help a basketball reviews are insane. Like there are some people take it and go, Look, what was wrong with me didn't change. This didn't help me. Fair enough. But there are people who say, women, I can't get pregnant. I take this stuff. And two months later, I'm pregnant. Like these people have been these people been trying to have a baby for years, and they start taking this thing and all of a sudden, pregnant.

Unknown Speaker 1:06:33 Interesting. Well, I don't have a uterus or ovaries so that's probably not going to be the magic

Scott Benner 1:06:37 potion to lose them. Kelly, where are they?

Unknown Speaker 1:06:40 I did yeah, no, I had them all removed at 41. Actually, what why? I had, well didn't know I had endometriosis. Oddly, because I mean, I got pregnant super easily with all four kids. But was having really bad pain and really heavy bleeding. And so when they went in to do just basic hysterectomy, he said, my ovaries were all strangulated. With endometrial, you know, whatever, endometriosis. So they took it all.

Scott Benner 1:07:12 You know, earlier, when I asked if your daughter's lupus had changed over the years, it was a question based on how many times doctors have said to me while talking about my daughter, you know, girls this age just sometimes struggle. And I'm like, that's a medical opinion. Girls this age just sometimes struggle. What do you mean? You don't mean? Like are we see this? Girls who had stomach pain after they start getting their periods? Blah, blah, blah. You know, sometimes they grow out of it.

Unknown Speaker 1:07:47 That's what they told me about my son. He was throwing up everything he ate. And they're like, what some kids just throw up? And like, that's not Yeah, no, no, that's that's not

Scott Benner 1:08:00 the land. None of those children were vomiting while we were walking around, like, what do you tell? Yeah, it

Unknown Speaker 1:08:04 was? Yeah. So they're like, well, some of them I've had kids like this, they just grow out of it when they get to college. Well, that hasn't happened. Either.

Scott Benner 1:08:12 We're or maybe they just find a way to eat around everything that's bothering them. And then we go to the next simple answer, which is like, oh, you can't handle dairy. Or you can't because listen, I can easily tell you that there have been times my life you could have easily said to me, Scott can't handle dairy. There are easily times my life. You could have said that to me. Except I can. Yeah, I just like, Yeah, my body's just not doing something it should do. Yeah, you know, so

Unknown Speaker 1:08:42 we did do the stomach emptying studies on my son, and that did not yield any slowness, according to them, but I still think digestive enzymes might be

Scott Benner 1:08:52 they wanted to do that test. And she was supposed to do it a week before school. And I said I do she does not need this test. And my wife said Come on, let's just do it. I was like, I She doesn't need it. And actually, I talked to Jenny and Jenny's I don't see why in the world. Arden would take this test. Even Jenny's like Arden does not have gastroparesis, but not get your braces like it's thought of in the diabetes community just in, in the clinical sense of the word. So everybody who's around diabetes thinks gastroparesis. And they hear the word and they think one thing but it has just a very, like a very technical term. It's a disease in which your stomach can empty itself of food in a normal fashion. That's right. That's what gastroparesis is. And you can have that without having diabetes. Correct. If you if you have people who have diabetes sometimes have out of control blood sugars, which make this happen to them quickly. Or more significantly than, you know what you see in the normal population from my understanding. And so the guy was just using the term I'm with Arden like he uses it with anybody. Oh, Arden has a slowing of her digestion. We call that gastroparesis. And, and he didn't even realize I think the the impact that the word would have on us like when he said it out loud. I was like, wait,

Unknown Speaker 1:10:18 what? Like no, right? Like fear. Yeah, I

Scott Benner 1:10:21 gotta tell you if, if Arden has guessed Her price is caused by diabetes. I'm gonna I'm moving everyone in the garage and turning the car on. Like, I give the backup Kelly unit. Like, I don't sleep. I keep her blood sugar amazing. Like her agency and her variability and everything. It was like, like, if that's I just give up? If that's it. It's so I was like, that's not right. And I talked to Jenny, Jenny, I talked privately about it a bunch. And she's like, I can't see it. She's like, I just, I don't see how that could be true. And so ignoring the doctor skipping the very expensive tests he wanted to take, and just going to the health food store and buying $30 worth of pills, straightened her out. And I don't mean like over time, I mean, immediately. Yeah. So

Unknown Speaker 1:11:10 I'm gonna buy it. My son's getting it this weekend. And so it's my daughter. So why I'm going to start it

Scott Benner 1:11:15 to give it a well, that's why I did it originally. Because there's like, I have enough of this concern. I also started thinking that I'm probably more like you. Like, you know, like, if there's nothing you can do about it. Just shut up and keep going. Right, great. Well, that thing. And I wondered, I didn't ignore all this stuff. Because was Arden and look at all the things we figured out. But when it was me, I was like, you know, don't be a baby Scott. Just keep going. Right? It's like one

Unknown Speaker 1:11:43 night is hard. Yeah. Cuz when it's your kids, I mean, you've put so much time and effort into them and you kind of fall on that backburner to a degree. I'm not in a bad way. But I mean, I just do it. I mean, I don't do it as well as you do. And if it were my kid, I'd like to think I would do a better job. But now that everybody's gone, I'm like, Okay, it's time for mom to get serious. Not that mean, six fives not a bad day when see. But yeah, I know, it could be better. So lovely.

Scott Benner 1:12:10 You're doing great. I think you just have you probably have a couple of settings that are slightly off that are causing you're bouncing around. And then that's what I would imagine is your issue. And you know, it sounds like even when you Pre-Bolus you might even be Pre-Bolus in too long. So So I think your settings are just a little skewed somewhere.

Unknown Speaker 1:12:31 So I need to get a hold of Jenny.

Scott Benner 1:12:33 Just dial it in. I mean, I could do it. But I'm very busy going.

Unknown Speaker 1:12:39 Busy being an empty nester. And yeah,

Scott Benner 1:12:41 I'm also not a doctor, it would be very inappropriate if I helped you with that.

Unknown Speaker 1:12:44 Well, you know, it's all good. It's all we take it all with a grain,

Scott Benner 1:12:47 although I fixed Ardennes while I was walking around target. And I was pretty impressed with myself. Like, everyone's going crazy. And I'm like, I'm yelling to Kelly. I'm like, I forget what I said to her. I said something like I was figuring out her. I was trying to figure out her. The insulin sensitivity assay, take this number divided by 1800. Real quick. Why I might just do it. Because

Unknown Speaker 1:13:09 I knew the answers. Yeah, I need to dive in and learn a little bit more about it. Because I like I said, I had an hour's worth of training. I've learned more in the podcast than anywhere else. And honestly, the first time I listen to the podcast,

Scott Benner 1:13:24 I didn't love it. Yeah, I'm hard.

Unknown Speaker 1:13:27 No, it wasn't God, it wasn't you. It was an I popped on. Someone said, Oh, listen to the juicebox. So I got on a juice box. And it was a story like this one. And I'm like, Okay, I'm gonna have to listen through hours and hours and pick the little bits and pieces out. And I need information in order to mean and then I realized that there was the, you know, pro tips and you know, you were developing those maybe when I started. But anyway, that is huge, because you can get in and get really good MIDI information. And then listen to the stories when you're on your walk and you aren't needing to take notes. You can just, you know, take the tidbits with you. And so it's a really nice balance. But you know, this wasn't available when I started,

Scott Benner 1:14:09 right. Well, listen, I'm

Unknown Speaker 1:14:10 glad when I was.

Scott Benner 1:14:12 I'm very glad to hear you talk about that way. Because when it started for me, I didn't expect that it would be what it is now. So I was just telling stories about how we handle things. And then people were like, you know, I've been listening to the podcast and my one sees going down. Right? It's like, oh, it's because everything I do is in there somewhere.

Unknown Speaker 1:14:31 Right there. I didn't start at the beginning. I started at the end, you know, kind of whatever was current was what I was listening to so I didn't even get the beginning stuff. It was in my cousin. When I got diagnosed type one. I was a type one for five years, maybe? Yeah, probably about five years. And my cousin my first cousin, her son was diagnosed. And so of course, you know, she mainly calls me and you know, you We start going through all the stuff. And that's when I first heard the podcast and I told her Oh, you have to listen. And I called the back said, No, don't do not go listen. Because I knew it was gonna overwhelm her because she was very overwhelmed. But then once I figured it out, I messaged her back, I'm like, Okay, now I send people the little cheat sheet that you guys have, it tells all the episodes.

Scott Benner 1:15:24 And we and Jenny and I are doing that bowl beginning series right now to which I'm starting to see working for people who are newly diagnosed. So what what ended up happening is around 200 episodes, as I was approaching them, I was like, I can't expect people to listen to 100 episodes of this, just to figure out how to Pre-Bolus and that kind of stuff. Right? Right. So that's when I contacted Jenny, who had only ever been a guest on the show. And I was like, Can I ask you to help me, I told her what I was thinking. And we made the Pro Tip series with that. And then at the same time, I was like, if you want to keep doing this, I'd love to do definitions for people. So they understand what all these words mean. And we then we get defining diabetes. And then from there, I was just like, you want to do variables? Do you wanna do this? Do you wanna do that? You know, I was like, Do you want to do a series for people when they're newly diagnosed, and let's do one about thyroid, and let's, you know, and now,

Unknown Speaker 1:16:10 that's super helpful, because people get in there, and they can get, you know, a little short episode of really good info, and then go away and work on it. And then they can go back and get the next one. And it's not as time intensive as listening through our hour and a half podcasts. Right, you know, trying to glean information. Yeah, no, it's fantastic. I've loved it in the in the Facebook group as well. The Best Facebook group out there. I mean, it's the only literally, well, I won't say the only positive one, but pretty much I mean, rarely do you get people that are super negative, everybody's, like, supportive, and I get you and, you know, it's, it's very helpful, not very knowledge, something

Scott Benner 1:16:51 kind of happened on the internet the other day where somebody took somebody posted in my group, my private group, and it's a graph, it's not pretty of their kid, and they're trying to figure out, you know, they're asking questions, trying to figure out what to do. And a, I guess, what I would consider to be like, an ultra low carb group is, I guess someone's in my group under a fake name, because I can't find them. And they screen captured this, this person's graph, and they used it in their group to say, you know, I don't know exactly what they said, but it wasn't pleasant. And, you know, I don't know why people are doing this to their children and stuff like that, and blah, blah, blah. And I'm, and I'm not okay with that. It's the group rules, you can't take information outside of the group and everything. So I put up a very like, like, a very, like, strongly worded post about it. And I just told people, I was like, again, you can't do this, if you do this, you're going to be blocked. If I if I, if somebody tells me that in another group, somebody's making fun of somebody, I don't care if you made the post, but if I see you liked it, or you're in it, or you've made a comment, I'm like, you're out of here, like this business safe place for people. It needs to remain that way. And what you see is that 99.9% of the response when people say thank you, this is what we need. And it really is only a small fraction of people who are otherwise but once they're you don't I mean like it but it's like a I guess it's like

Unknown Speaker 1:18:22 yeah, it seems like about every three to six months. You have to go in and do it. You know, a Scott reprimand on people. It's funny I'm like, oh my god, it's hilarious what you said

Scott Benner 1:18:32 just this last one I was I already to you as we find because it makes the point but there most people are not like that. No, but it's like a flying your soup. You don't I mean, if only point oh 8% of your soup is fly. That's still too much. And no, nobody wants that. So every once in a while, you just have to go in and say it on my said I'm sorry to have to post this but from time to time it becomes necessary to remind some people about basic civility. You are not permitted to repost any images, graphs or words that are that you see shared in this group. If you do, you will be removed from the group and your account will be blocked. There are no second chances. If you are a person doing this, and you are hiding your true identity, well, I find that particularly cowardice and we'll be happy to call you a piece of your face. Please, please respond below so that we can begin that dialogue in if you see any reposting materials online please let me know so that anyone participating in this file behavior can be removed from the group. Let me be clear about what that means. Let's say hypothetically that one group uses an image from here to shame a person and then you in that other group participate in that conversation. You will also be removed from this group. No one that would assert a false moral superiority. Using a member of this group as cannon fodder is welcome here to take this a step farther. If you think it is okay to use another person to make your point. And you should also leave the group immediately. There is nothing more important than the privacy and safety afforded by this group, a group and for people living with diabetes, not just the people whose decisions you agree with, but all people. If this is the sentiment that you disagree with, please leave the group now. To the other 99.9% of you, I'm sorry that you had to see this and hope you have a pleasant evening. To the person who did this. I know who you are. I don't care why you think this is okay. I imagine that you're pretty pissed right about now. But please remember that as a courtesy, I did not identify your group. If you would please return the kindness by leaving my group and taking that post down, I would appreciate it. And to reiterate the sentiment that I've shared a million times before, I don't care what anyone believes, eats, smokes loves, doesn't matter to me. If it matters to you, right on, do you. But in this space, we don't make people feel badly for these or any other reasons, you will not push your beliefs on others here. I get that some of you think that you're saving the world. But again, make your own group start your own podcast, run a skywriter. Whatever makes you feel complete is all good with me. Unless you're going to repost something that a person shared here in confidence, because that is a bridge too far. So that's that. So yeah, about once, maybe twice a year, right? I yeah, I get to go to a creative writing class. And

Unknown Speaker 1:21:19 it's hilarious. I mean, it's always really, really humorous to me, because he just call them on the table just for I mean, and it is it's 100% True. Just leave people alone.

Scott Benner 1:21:29 I've had people say, Why didn't you send me this privately? I'm like, Well, you do something crappy. And then if we get to privately handle it, I'm like, No, if you're gonna be crappy in public, then you're gonna get talked to about it in public. And everybody else needs to know that they they're safe, be defended, and the rest of people who might do something like you, maybe they'll just leave on their own. I'm not looking to listen. I think that group is amazing. I think if you have problems managing insulin, or managing the psychological aspects of diabetes, somebody in there will help you. And I think the same thing about the Podcast, the podcast, if you want anyone seeing the five, just listen to this podcast, carve out 800 hours start at the beginning. Listen to it your A once he's going to be 5.5 when you're done. 500 hours. I don't have it. You do? What are you doing? You played tennis all day yesterday? You're fine.

Unknown Speaker 1:22:15 I did. You're right. You're right.

Scott Benner 1:22:19 And so, but but is everyone going to do it? No. Everyone's not gonna listen to the podcast. And that's okay. I can't make them listen to it. Not everyone's gonna be a nice person online. I'm not trying to make them be that. I'm just saying. If that's not who you are, if that's the if you don't want to be involved in this thing the way it is, that's fine. Just go somewhere else. But don't come over here. And you know, my pool, like, that's not okay. And let's not pretend that that's not what we're talking about with some big nice words and being flowery about people's feelings. And Baba, no, no, just be a person or get out. That's it. It's super, super, super simple. That's all super simple. I just said, Yeah, Oklahoma. You people can't drive in the snow by

Unknown Speaker 1:23:04 the way. No, they can't. But I'm not from Oklahoma. So

Scott Benner 1:23:07 you said that earlier. But you've been there long enough. Yeah, but I lived

Unknown Speaker 1:23:11 in Connecticut. That's where I lived. I guess I've lived most of my life here now. But yeah. I can drive in the snow.

Scott Benner 1:23:20 Yeah, I bet you can. But I don't know. Okay. All those trucks all those trucks. Little bit of snow. Everybody panic says in their house.

Unknown Speaker 1:23:30 Oh, yeah. Because their pickup trucks are hard on the snow.

Scott Benner 1:23:34 Kelly you throw a little weight in the back. It's fine. It's not a big deal. Couple cinderblock bags of sand something like the kids back there. You don't think in Oklahoma. You can still sit in the back of a truck. probably can. Yeah, I'm saying. All right. Anything. We haven't talked about Kelly that we should have? I don't think so. Cool. I appreciate it. I appreciate it. I appreciate all you do. Oh, thank you so much. I'm very happy for for how much the podcast is helping you. I'm glad that maybe we talked about something here today that will help your family I would love it if it did. If you would let me know. I surely well. Excellent. All right, hold on one second. Okay. A huge thank you to AG one. That's right. Athletic greens.com forward slash juice box, get that green drink. Start your day right. And cozy Earth. With the offer code juice box at checkout, you will in fact save 35% off every order all day long. Everything you buy at Ko xerath.com use the offer code juicebox. And of course, Kelly for coming on the show today and having this awesome conversation with me. Thank you so much. Guys, I hope you're enjoying the program. If you are a share it with somebody else. Don't forget to subscribe and follow and check out the private Facebook group Juicebox Podcast type one diabetes. Thank you so much for listening. I'll be back again very soon. with another episode of The Juicebox Podcast

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