#779 Lady In The Closet
Barbara has type 1 diabetes..
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends, and welcome to episode 779 of the Juicebox Podcast.
On this episode of The Juicebox Podcast, I'll be speaking with Barbara, she's an adult living with type one diabetes who I had on the show because of what she did for a living. I of course, then almost exclusively didn't talk to her about that. I don't know, I don't know what's wrong with me. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your healthcare plan, or becoming bold with insulin. Are you sitting there right now thinking Yes, Scott, I am a US resident who has type one diabetes, or perhaps you're thinking I am a US resident, and I'm the caregiver of someone with type one. If these are things that you think about yourself, I need you to go to T one D exchange.org. Forward slash juicebox. Join the registry, fill out the survey completely. That's what I need. That's it. Take you 10 minutes. If you're fast taking nine minutes if you're slow 12 I'm not with you. I don't know exactly how well your type says a quick survey helps people with type one diabetes. Nothing's hard or confusing about it won't take you long supports people with type one might help you out. Definitely helps me out T one D exchange.org. Forward slash juicebox. This episode of The Juicebox Podcast is sponsored by touched by type one and touched by type ones dancing for diabetes show is coming up quickly. Head over right now to touched by type one.org. To learn more about it and buy yourself some tickets. today's podcast is also sponsored by the Contour Next One blood glucose meter. You can learn more about the Contour Next One, and even buy it online. At contour next one.com forward slash juice box get the accurate blood glucose meter that my daughter uses at contour next one.com forward slash juice box. This show is sponsored today by the glucagon that my daughter carries G voc hypo pen. Find out more at G voc glucagon.com. Forward slash juicebox. Said Barbara I'm gonna start the recording. I don't want to. So I'm sorry. Say that again using a suitcase as a desk and
Barbara Westberg 2:31
and a stepladder as a chair. So I'm I'm good and comfortable here
Scott Benner 2:37
and in in your closet. In my closet. Yes. And earlier when we weren't recording. And I knew magically that there was no carpeting in your room for a second. Were you impressed?
Barbara Westberg 2:49
Slightly slightly. Barbara. Yeah.
Scott Benner 2:52
Give it to me a little bit. I mean, you don't I mean, like.
Barbara Westberg 2:55
I mean, this isn't your first podcast. So you've probably had guests on, who have been in all kinds of wild situations. Alright,
Scott Benner 3:05
I see. You're not gonna let me have that. That's fine. We'll move forward.
Barbara Westberg 3:11
Let's see who am I? I am Barbara Westberg. As long as you spell it with two E's and no use someone who understood that you were looking for people who have interesting careers, and I have had a multitude of those. I graduated from Arizona State University with a degree that people have actually made fun of in comedy routines.
Scott Benner 3:38
is an English degree.
Barbara Westberg 3:41
No, no, no. I, my degree from ASU is Recreation and Tourism Management.
Scott Benner 3:50
Oh, I didn't know that was the degree. I didn't
Barbara Westberg 3:53
either. And then I met someone who gave me my campus tour. And I was contemplating telecommunications, management. And he told me what he did and he was like, You got to do this greatest thing ever. And I did and it was the greatest thing ever. Best advice ever.
Scott Benner 4:13
What's the what did it prepare you to do?
Barbara Westberg 4:17
Um, pretty much anything except for you know, brain surgery, things like that, or be a diabetic educator. You know, life gave me those skills. But there's a lot of management involved in Recreation and Tourism Management. So anywhere where I put your mouse around, I've got this educational foundation. And also, I can take an event that is falling to pieces and somehow make the people who bought tickets to it not understand that everything is falling into place. says,
Scott Benner 5:02
are you telling me you know how to shine up a turd, Barbara?
Barbara Westberg 5:05
I do. I certainly do. Thank you for that that phrasing I'm going to add that to my resume
Scott Benner 5:10
that writing your CV. Barbara Westberg can shine up your turd? I'll tell you what, that might get you a lot of work honestly.
Barbara Westberg 5:20
Maybe not the industry I'm in fine.
Scott Benner 5:23
So So you come out of college and like, what's your first job?
Barbara Westberg 5:27
Um, actually, my first job in the industry was while I was still in school, I had an internship for Well, the way I decided that I wanted to be in events was I was volunteering at a fundraising event that my aunt had helped orchestrate. And I thought it was so much fun and so inspiring. And she said, you know, a lot of the people here are getting paid to do this, and my jaw dropped. What do you mean? I thought everybody here was a volunteer? Oh, no, there are people who have to actually be responsible for things who actually work for nonprofit organizations. And my whole life shifted. And that's when I knew that I wanted to be a fundraiser. And what I wanted to the way I wanted to do that was through events. So as a student, I had to have an internship. And it was with, you know, the, the rubber ducky races.
Scott Benner 6:38
No, but what what is that?
Barbara Westberg 6:40
They dump a whole bunch of ducks into a body of water. And the rubber duck that floats across the finish line first wins, whatever the organization has come up with as a prize. Okay.
Scott Benner 6:52
Who gets a rubber duckies? Back? That was my thought. Have you gotten back at the end?
Barbara Westberg 7:00
There? You would have to read the manual. There's all kinds of ways. But yeah, basically, it's a bunch of floating devices that make the ducks go into one lane, and then they're scooped up and put in things like shopping carts to drain them. I'm sure every Duck Race has a different retrieval method. But,
Scott Benner 7:20
Barbara, I want to tell you right now that I would wear a t shirt that said, every Duck Race has a different retrieval method. Because I've never heard those words strung together before my entire life.
Barbara Westberg 7:36
And see, this is what you missed out by not majoring in Recreation and Tourism Management. When you went to school.
Scott Benner 7:43
I didn't even go to college. Barbara. I missed out on everything. i There's no shot. There's still a shot. Can you imagine if I I'm so old, I wouldn't. I graduated from high school, went home. My mom gave me a cake. I had to go to bed because the next morning I started my job. And I well, I worked in a sheetmetal shop making $5.50 an hour at that time. So there was no there was no, I did not grow up in a way where higher education was something that anybody thought of. It was a it's just not it was not my family. But so. So wait a minute. So you have type one diabetes, When were you diagnosed?
Barbara Westberg 8:25
It was diagnosed in 1976.
Scott Benner 8:28
Wow, I was five in 1976. How old? Were you? Six? Oh, look at us.
Barbara Westberg 8:35
Yes, I'm one of those dinosaurs. You know, the back in my day, there was no way to test your blood sugar.
Scott Benner 8:42
Yeah. Then what did you do? I said, Well hold on a second 76. Is that like 45 years ago? Wow, that made me feel bad about myself. Give me a second. Let me breathe through that. I just found out yesterday, I have to have knee surgery. So I was like, Well, that sounds like a thing that happens to old people. So well. I mean, what was What's your early I don't want to jump around too much. But I'm going to what was management like 45 years ago?
Barbara Westberg 9:17
45 years ago, my mother was a registered nurse and was told that diabetes only especially type one only ran in families. So there was something wrong with me that was not diabetes. And finally she carried me into our family physician's office, and he said, drive her to the hospital don't wait for an ambulance and actually died in the emergency room. And it was something That was incredibly stressful, because every time my mother would share this news, I remember hearing, oh, she must have got that from the other side of the family. Well, no, I, I actually didn't need another diabetic until I was in high school. Didn't know anyone who had it was lucky enough to have a trained medical professional as a mother. But she was completely unprepared to for having a child diagnosed with type one. And I was hospitalized. And it was maybe five days. And I fully expected to leave the hospital and leave all of these injections and things behind me. However, the injections followed me because that was the way we managed one shot a day, there were two different types of insulin. They were I believe they were pork derived insulin that she mixed together in one syringe. And I needed to urinate into a cup and use an eyedropper to put drops on this little like, looked like a as, or something like a little piece of candy. But drop that into a glass test two, and then put drops of urine on top of that and see what color it turned, which basically was telling me nothing useful.
Scott Benner 11:42
I was gonna say, then you got all that information and did nothing with it, right?
Barbara Westberg 11:46
Yep, didn't change anything. So we were given a diabetic diet that we probably adhered to for about 15 minutes. And then two working parents with two kids. And it just management was inject your child with insulin in the morning, cross your fingers and hope. Yeah.
Scott Benner 12:12
But But can I ask you Are you do you have any weird, like complications? Or how are you doing?
Barbara Westberg 12:20
I, I actually met a diabetic researcher, who said, I don't mean this to sound weird, but I would love to study your body after you die. You're incredibly healthy. What's your secret? And I was actually honored by that. I do have some diabetic retinopathy. That actually came on during my pregnancy. But aside from that, I'm super healthy. That's crazy.
Scott Benner 12:51
Do you find that now looking like understanding? I don't even know how you manage right now. We'll get to it. But understanding how management exists now, looking backwards. Are you amazed by that?
Barbara Westberg 13:03
Oh, I don't know how I lived through my teenage years that rebelling the even as a small child like the rebellion and means strong. And doing things like sneaking Halloween candy. So Oh, so you know, as a child in the 70s. Basically, one of the other things they told us was just stop eating sugar altogether. Okay, you know, the the thought of eating a cup of rice was no problem. But having one piece of hard candy. No, you can't do that. So we've come so far. And yeah,
Scott Benner 13:49
I wonder if you're like me, when I hear that story, just that simple story. I think there's no way that people didn't understand carbohydrates, and that they would be broken down to your body and stored as glucose like, great. That had to have been a thing we understood in the 70s. So when I hear stuff like that, but I always think of is that how, as a as a society, how uninformed we are about things because somebody knew that that was not an unknowable fact that rice would turn into glucose when you ate it. Right? Like so. How do we put people? I don't know why I'm asking you this. But I'm always fascinated about why we put people who are unprepared for their job into that job. And I don't know if I'm making sense. I'm left down by people very often. And these are the kinds of stories that make it really bubble up inside of me. I'm sorry, I know you just you just made me feel like why can't this be understood and universally? Like it shouldn't take more than five minutes for everybody to get that? I guess? I don't know. It's, it seems insane to me.
Barbara Westberg 14:55
And for me what this really bring comes to light is that every diabetic is responsible for their own care. Or to have a great team of of parents or caregivers, and doctors and nurses and health care professionals. There's a lot to know. And you're in your, what number episode of this podcast, and I'm sure you learn something new or have a different take every time you talk to someone new on your podcast. Sure, yeah. It's a lifetime of learning when it comes to diabetes. And I'm, I'm still getting it wrong sometimes. Yeah. And the thought that someone who, like, I never saw an endocrinologist until I was in my teens. So my family doctor is supposed to know how to manage diabetes. That was an unrealistic expectation,
Scott Benner 16:03
right? No, I agree with you. I know. And I like intellectually, I understand. But I just, I'm thinking of a little girl like Horkan down rice, like it's nothing. And then somebody's like, Would you like a root beer barrel and someone flies across from us, Barbara cannot have a root beer barrel, you know, or whatever. And by the way, that was my favorite candy growing up.
Barbara Westberg 16:23
Oh, yeah, to have a birthday party where we ate pizza. And then the cake, there'd be candles on the cake. And I'd blow out the candles. And then everyone else ate the cake. And I didn't
Scott Benner 16:35
write the Gen three. Right? Yeah. You know, most of what I remember from the 70s, the mid 70s. Is the bicentennial. And gas lines. Those are two like enduring images in my head of the mid 70s. I don't know. I don't know why that is. I don't know. Maybe my life was super boring. Was that could that have been the only thing that happened in 76? Is that? Oh, I don't know. All right. Um, this whole thing is making me feel very old. I need to move on from your life. We need to move on from your early life. So when does I mean? Are you using? You're using beef and pork at that point, right? Insulin, right? Yeah. How long did you do that for? Do you know?
Barbara Westberg 17:25
What probably. Now, I actually I don't know. Like, my mom was responsible for filling the prescriptions. But I know that when I attempted to donate blood, they said, Oh, no, thank you.
Scott Benner 17:42
Because of that, right?
Barbara Westberg 17:43
Yeah, because of the actually, I think it's the beef insulin that I took. So I can never give blood, which is a interesting side effect of being a diabetic from the 70s.
Scott Benner 17:56
Well, I just talked to somebody today today, because I guess I'm doubling up my episodes trying to make up for my my foolhardiness of going away for a week and 25 years ago diagnosed. So 25 years ago, it's nine 2022. That's only like 97 Maybe. And they used to beef and pork for a little bit. You might have used it for a long time. Right.
Barbara Westberg 18:22
Right. I moved when I was 18. And, and was introduced to my very first endocrinologist. So that's probably the pivotal point. So that would have been 1988 is when I probably switched to a lab created insulin. Yeah, I was gonna
Scott Benner 18:39
say like mid mid 80s was probably well, more than a decade likely. And then you were just using cloudy and like, regular and mph. Right. Right. Yeah. And then you probably did that for another decade.
Barbara Westberg 18:54
Oh, yeah. Okay. And then they said they suggested multiple daily injections. And I said, No, I'm not doing that. It's not how I believe this far. I'm fine. There's no way. Oh, the one thing you should know about me is I am a diabetic who has a wild fear of needles and blood. And so the thought of me injecting insulin into myself twice a day, it didn't matter. You could not talk me into that. Until I was responsible for another life that was growing inside me and knew it was time to take responsibility and, and do the things that they were telling me to do.
Scott Benner 19:40
I'm trying to paint a picture between I mean, the the tight management that we use now, versus I'm just going to inject some of this. I mean, you're probably only doing it once a day at some points, right. Maybe twice. Yes. Yeah. So you know, and you're so like, I don't know, though, like do you think if we went got I found 100 people who were diagnosed the year you were that we wouldn't be hearing like, all these great health outcomes, like Could it be that you're just randomly lucky.
Barbara Westberg 20:11
Um, I actually have a network of diabetics that I talked to, and many of the marmite age or older. And it's really interesting. There are a lot of us who are doing very well, considering what we've put ourselves through. So, I wonder course, I'm not a research scientist, but I wonder if it's kind of like when you quit smoking, you can undo some of the damage that you were doing, and recover in some ways. I mean, it's, I don't know, miraculous, it's absolutely miraculous. I should not be alive. really shouldn't
Scott Benner 20:57
talk to me, tell me something that happened in your life that makes you feel like that should have got me that day.
Barbara Westberg 21:07
That should have got me that day. I was in Las Vegas. So a lot, a lot of walking a lot of food I was unfamiliar with sitting at a table and I felt a little woozy and I walked away and tested my blood sugar. And it was 33. And if you've ever been in a casino in Las Vegas, there's nothing close by you. You're surrounded by gambling options. But the idea of me then trekking back to my room, because for some reason, I didn't have candy on me. Yes, I should not have lived through that. Being 33 My blood sugar 33 in Las Vegas. I don't know how it was upright.
Scott Benner 21:59
Yeah, ironically, you had a big bag of rice in your purse. So you actually felt poorly tested your blood sugar and then went and then trekked back to another building to help yourself.
Barbara Westberg 22:16
Yes, yeah. Yes, you know, your mind is is thinking so clearly at that point.
Scott Benner 22:23
You're only focused and not paying attention like to big picture stuff because you can't because you're so low and you're just thinking like get to candy, get the sugar get the food do that.
Barbara Westberg 22:32
Right and somehow passing you know,
Scott Benner 22:35
every restaurant and bar on the way to
Barbara Westberg 22:39
places that have things like juice and yeah,
Scott Benner 22:43
wow, that's crazy. Also, I can't believe I skipped over this but I'm sorry your mom took you from the doctor to the hospital when you were diagnosed and you died in the hospital
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Barbara Westberg 25:31
died in the emergency room.
Scott Benner 25:32
How does that happen?
Barbara Westberg 25:34
I don't know exactly. I, I was so far gone like someone else would have been diagnosed much, much earlier than I. But her medical training taught her there was no way I was a diabetic so they weren't looking for it. So there was nothing wrong with me. You know, they couldn't find anything wrong with me. And I'm tired all the time I started wetting the bed again. I was ravenously hungry, but was losing weight. I was skin and bones. And
Scott Benner 26:12
but just based on the belief that if if you're, if you have diabetes, then your mom has it. That's basically how they thought, right? And since your mom didn't have it, then you couldn't have it. And that was it.
Barbara Westberg 26:24
Or at least someone in the family. My mom was one of nine, one of them. Clearly would have had to have been a diabetic. You don't have OGS like that, or my grandmother was one of 13 Somebody so that was should have had diabetes. That was
Scott Benner 26:39
the conventional thinking back then. Yes. How about that? I wonder Do you know if any of those people had other autoimmune issues?
Barbara Westberg 26:46
Oh, yes, definitely. There's a lot of paper in hypothyroidism and
Scott Benner 26:55
self anatomy celiac. With even thought of it that way back then, or was it just like grandma runs to the bathroom after dinner? Like, you know what I mean? Like, I wonder if they even paid attention to celiac in the 70s? Good question. Isn't it? Wonderful? I mean, I'm looking at this photo, I pulled up of gas lines, and all I'm telling you is that cars are way better now than they used to be. Some of them were so big and like, just unruly, just really large. You see, there's a Cadillac here that looks like a small boat. Anyway, yeah, that's just very interesting to me that, I wonder. I wonder if that was, like prevailing wisdom medically, or if it was just like, a thing that people thought it's a I mean, because you hear it all the time, like, oh, it runs in families. I'm like, Yeah, can eat you know, doesn't mean it has to, but they were willing to kill you over that belief, basically, you know,
Barbara Westberg 27:56
I have a medical book that my my in laws are moving. So they're downsizing. What they have, and this book is from, I think it was maybe the 60s, like one of those home diagnosis things before WebMD even existed. So you can look up, you know, hives or whatever. Yeah. So first thing I do is look up diabetes. clearly states, it runs in families. It was it was being trained that way. That's what they thought
Scott Benner 28:33
that makes sense. So you just you were in DK like significantly. Yes. Yeah. Gotcha. But do you remember? Does anybody ever talk about uh, how long were you in the hospital before you left?
Barbara Westberg 28:45
I think it was five days. My mother's passed away. So there's really no nobody has a clear focus on you know, what she went through and, and what she did to get me home, so. But yes, then arriving home, even though they had set the expectation that I would have injections. I was not having that. I'm not in the hospital. I'm at home home is not where you get shots. Absolutely not. This poor woman battled me. It. It had to be a year or two that she would have to chase me around. I refuse to give myself injections. And finally, on my I think it was my 11th birthday. She said here it is. I've, we've trained you, we've given you all the skills that you need. You've practiced you're gonna do it today or you're gonna die. Hi. Because I'm not chasing you around anymore. She had enough stability.
Scott Benner 30:06
She had absolutely had enough like that. Did you do it?
Barbara Westberg 30:12
Of course I did. I'm here to talking to you now. I
Scott Benner 30:15
mean, did you have to fight this you have to fight whether you just did you just kind of capitulate?
Barbara Westberg 30:19
Oh, she just left me there. She left me there at the kitchen table with the insulin and the syringes and walked away. And I have no idea how long I was there. But eventually I gave myself insulin.
Scott Benner 30:34
You know, it's not easy. Not the first time for sure. And you really fought even as a little kid. You're your principal?
Barbara Westberg 30:43
Yes, yes, very much. So this is this is not what happens in your home. This happens in the hospital or the doctor's office,
Scott Benner 30:51
we don't do hospital stuff in the house. And we don't do house stuff in the hospital. And that's the rule dammit.
Barbara Westberg 30:56
Yes. And go ahead and try and make it fun and cool and sciency that I get to take five drops of urine and put it on a little thing in a test tube. I was not having that either. And that, like that was when I decided science is not for me.
Scott Benner 31:16
Your poor mom, I get to see your mom like, Look, honey, it'll be fun. Your she doesn't believe it when she said, By the way, you know, and you're like, Miss not fun, leave me alone. But something else. That's a crazy story. So you say that you really turned to a tighter idea of management, when you were thinking of having a baby or when you found yourself pregnant, which wasn't
Barbara Westberg 31:40
what I found myself pregnant. Like, oh, I am responsible not just for what happens inside of me, but someone is residing inside me, and depending on me entirely. So let's take the crash course and how to be a good diabetic.
Scott Benner 31:57
Did you have to be told that by a doctor? Or was that a realization you had on your own?
Barbara Westberg 32:02
It was a realization I had on my own. So something
Scott Benner 32:04
that you're aware of, but just never allowed yourself to deal with prior to that?
Barbara Westberg 32:10
Um, well, it was. There were no negative outcomes. You know, I was completely horribly mismanaged. My a one C's were horrific. But I got up every day, I did everything I needed to do. I went to school, I graduated with honors, I had a job, I, you know, drove a car, I had a life. It didn't seem like I needed to do these crazy restrictive things. And in my head, actually managing my diabetes was crazy and restrictive. And then as you learn to manage your diabetes, it just opens up more and more freedom, your ability to do more things, go more places, eat whatever I want, where I know, there are some diabetics who still kind of sway away from that. But once you figure it out, it's like, oh, what else can I take on? This is a puzzle. What's next? Will I ever master pizza?
Scott Benner 33:23
This is always my contention. That it is once you understand, you know, once you have the tools, and you, you know, have some concepts, it's far easier to do a good job that it is to not, you know, it gets so much effort. Well, I think it's so much like mental effort of feeling like you're failing all the time and constantly worried about what your agency is going to be or what your blood sugar is right now. I just think it takes more time to do it in a way that's not beneficial than it does to do it in a way that is beneficial. But having said that, if you don't have the tools, if you don't know the steps to take that kind of presents a third prong to the problem. And that one is that you're putting in all this massive amount of effort with no no positive feedback at the end. You're not You're not reaching any any kind of a desired end to what you're doing. So it just feels like you're working, working working really hard, for no reason. But you put so how do you figure it out? Like what year is that that you're that you're pregnant?
Barbara Westberg 34:28
Oh, that was? So my daughter was born in 93. So I was pregnant. 92
Scott Benner 34:37
And what does it look like getting the information you needed? Like where does it come from?
Barbara Westberg 34:43
I'm my endocrinologist, okay, which was an interesting jumping through hoops. I had to be diagnosed as pregnant before. I could, like go to these prenatal visits with my endocrinologist. So learning to manage the health management system, the health insurance system was like, Oh, okay. I know I'm pregnant, but I need to officially be diagnosed as pregnant. So in the interim between me knowing I was pregnant, and me being allowed, or Yeah, being allowed to see a doctor and have it covered, I took a ride in an ambulance because in the first trimester, my insulin sensitivity skyrocketed. So I was giving myself these wild shots. And my body was very sensitive to these large injections that I had been taking to cover what I was used to. And so then, after taking a ride in an ambulance and being hospitalized for a short time, they finally figured out that I am, I was a type one diabetic who was also pregnant.
Scott Benner 36:07
Definitely pregnant. So are you saying that in the beginning of the pregnancy, you were using more insulin? And then at some point, maybe that fluctuation of hormones, like died down for a little bit, and then suddenly the amount you were taking was too much? Was that this? Is that how that went?
Barbara Westberg 36:23
Yes. And I don't know if this is still true, but when I was when I was pregnant, they told me your first trimester, you're going to be sensitive to insulin, your second trimester, pretty average, and then your third trimester, you're going to be wildly resistant to insulin. And turned out to be true in my case, and yeah, it was. So
Scott Benner 36:49
it sucks. But I mean, at least you I mean, you figured it out. Right baby was born well and all that stuff. Yep.
Barbara Westberg 36:57
Short time in the NICU, but then knock on wood has not seen the inside of the hospital since
Scott Benner 37:04
Wow. That's excellent. Good for and that's a shame. How old is that kid now?
Barbara Westberg 37:11
29.
Scott Benner 37:12
Wow. I'm sorry. Made you say that out loud.
Barbara Westberg 37:18
It is kind of shocking.
Scott Benner 37:19
Yeah. No, I know. i You're like an adult. Does she have her own kids? No, not yet. At least that'll keep you from feeling old for a little while. Yeah, that part is my kids. My oldest is 22. And it doesn't strike you yet. I'm thinking the age is going to be like 25. When I say that, I'm gonna think oh, God, like, I need a rocking chair. If he's 25, you know? So okay, so you you got that figured out for the pregnancy? But did it stick with you after the pregnancy? Like, did you like turn a corner, so to speak?
Barbara Westberg 37:56
A little bit multiple daily injections, but my monitoring of my insulin, like doing my blood sugar? I thought, Oh, I only need to do that if I don't feel well. Which is so wildly untrue. Because as you become adjusted to a higher blood sugar, you feel fine. Or? Well, that's an interesting thing to claim. Because I don't know what fine is I haven't been fine. So what fine would what a non diabetic person would feel like, versus what I wake up in the morning and feel like I have no concept if, if they're the same thing, because I haven't lived in a non diabetic body in so many years. But it wasn't something where I was like, oh, yeah, this is diabetes related. If there was something that I'm like, Oh, I feel like I have blood in my veins. And I am struggling getting out of bed in the morning. I would think Oh, is that that you haven't slept a full night since your child was born? Or is that actually your blood sugar's high? And I would test my blood sugar and correct then, but
Scott Benner 39:14
you had to feel almost crippled to pay attention to your blood sugar.
Barbara Westberg 39:17
Yes, yeah. And, and then I met a diabetic mentor. That that was the turning point.
Scott Benner 39:26
How does that happen? Um,
Barbara Westberg 39:28
she was a co worker. And she took me by the hand and said, What are you doing? I used to, we went to lunch, and she knew I was type one. We had bonded on that. And I got up to go hide in the bathroom and test my blood sugar and give myself an injection. And she said, whoa, whoa, whoa, wait a minute. What are you doing? And I had the first like, honest interaction in a restaurant with another diabetic, where she said Look, if the waitress has a problem with needles, that's her problem. My problem is, I'm a type one diabetic, and I need to eat lunch, I need to test my blood sugar and give myself an injection. And I have no apologies. And my hair blew back and rainbows and birds were singing. And this was the exact person I needed to walk into my life to show me that the, the hiding. So when I was diagnosed, one of the things I was coached on, was keeping this hidden. It's a secret, you could be discriminated against, you could like in a job interview, you would never reveal this because clearly they're not going to hire you. You keep this hidden. Whatever you do, don't tell people is how I was raised. And then I meet this person who is completely open. Yeah. And that's what shifted. Do you think 100% was shifted?
Scott Benner 41:06
Do you think I'm not? I'm not apologizing for this. But I'm trying to find out if you think was that accurate, though? I mean, as far as getting a job and not being discriminated against? Was it smart to to hide it in that regard? Or do you think it was a, it was a like a monster that didn't really exist? Something people said,
Barbara Westberg 41:26
um, I'm not clear. But I do know that the job that I have today, during my interview, we talked about it and my boss's daughter is also has type one of the job then. Yes. So having, having the openness, I think brings you what you need. If you're if you're not open about what you need, and where you are in your life. You know, people talk about you show up at an interview pretending to be something you're not. And then you you think you have this horrible job? Well, they hired somebody you weren't. If you're not authentically you at your interview, they're hiring somebody that wasn't right for the job, correct? Yeah. So now I'm authentically me, to the point where I have a diabetes tattoo on my wrist that, you know, it's, it's out there. Yeah, I do not hide it.
Scott Benner 42:31
I want to be clear, I don't think hiding is a good idea. And I would Moreover, say that if you can't get a job because you have diabetes, and that's not a job you want to begin with, just like I would say, you know, if you are dating a person who doesn't want to be with you, because you have type one, and that's not the right person to be with either. I was just wondering if like contextually at that time in the world, if it was a if it was a legitimate concern that you could you know what I mean? Probably, I mean, it probably was, I'm being
Barbara Westberg 43:00
honest with the Americans with Disabilities Act come into play. Oh, no.
Scott Benner 43:04
But window, When did people start paying attention to it and believing that they could be, you know, pressured over it? You know what I mean, like that, just, let's see Americans. Disabilities Act of 1990. I think it's called the Americans with Disabilities Act of 1990, or the ADEA is a civil rights law that prohibits discrimination based on disability is July 26 1990. It was a factor.
Barbara Westberg 43:30
Oh, and there you have another thing, like, the, you know, my, my parents tried to empower me and say things like, you're not disabled.
Scott Benner 43:42
We call it the Americans with Disabilities Act. And you're like, I'm not but by by the way, if you watch online, that's a that's a sensitive argument. You know, am I disabled if I have diabetes? I think the most reasonable answer I've ever heard is, listen, there are rules and laws that protect you, if you have diabetes, just because they use the word disabled doesn't mean you need to think of yourself as disabled, but you should take advantage of the opportunities and protection if you need it. Exactly. Yeah. But I do get that not wanting to, there's no way my daughter thinks of herself as disabled. And at the same time, she obviously is, you don't I mean, like she takes insulin, if she has too much of it. She gets low. If she gets too low. She can't take care of herself. I mean, that's a mean letter of the law. That's, that's a disability. Do you agree? Yes. Yeah. Right. But so I think it's two different thoughts. I think it's a I think it's a legal distinction. Or, and it's a but it's also a way that people think of themselves I think you can I think you can agree with the legal distinction without thinking of yourself as disabled. That that's my thought, but I don't I you know, I don't have diabetes. So I'm not the right one to, to think that one through I don't think. Yeah.
Barbara Westberg 45:05
And I never went to school and had a meeting. And it just,
Scott Benner 45:15
you didn't have a 504 plan?
Barbara Westberg 45:17
504 plan? Yes. Never had one of those. No, not once.
Scott Benner 45:22
So. So if if you were a child, and you ran into something that was made more difficult by diabetes than what did you do if you weren't able to just raise your hand and go, Oh, I don't know if you remember. But I have a document that says, you need to give me 30 more minutes to take this test. Like, how was it handled before things like that existed?
Barbara Westberg 45:40
I either raised my hand and said, I need to go to the nurse. And if my blood sugar was low, we had juice boxes there. Or I didn't, there. There was, you know, just personally needing to go to the nurse for low blood sugar was the same as somebody else needing to go to the nurse because they had a stomach bug and or a fever.
Scott Benner 46:09
Yeah, so an illness you had in their mind? You had an illness? And that was that? Yep. Yeah. Listen, I know, there's a lot of things, right pressure makes diamonds, stuff like that. There's an argument to be made, that the world is not fair. And you have to learn how to live in it. And there's an argument to be made that you you shouldn't be able to just, you know, discriminate against people because they have issues that other people don't have. I mean, I I agree with the whole spectrum of that conversation. To be perfectly honest. I don't think there has to be a I don't think you have to pick a side on that one, I guess, is what I'm saying. Yeah, cool. So all right. So wait, and so your your job out of your event planners, you did event planning, right when you were first, like in college with that, that internship, and then everything like that, and then you've moved it towards, like charitable, that do you still work in the in the not for profit space,
Barbara Westberg 47:14
not any longer. But while I was getting my degree, I had to write a paper about an event. And the event that I was paired up with, was an outdoor music festival. And as a student, you know, I've got my all my thought process in line of what I'm going to do and say and write the paper. And I show up at this outdoor music festival. And I love music. And I was just so thrilled to be there. So happy when it started to rain. And then it started to rain more. And this outdoor music festival was canceled. And I learned more about planning and outdoor event based on this poor organization who had like their whole business on the line to pull this off. And so at the end of it, I volunteered to go back to the office and help them answer the phones as they're trying to figure out what they're going to do with this festival that is literally falling apart with every additional raindrop. And like this is a great learning experience. I'm more than happy to answer the phones. And I wrote the paper. And after I wrote it, I thought, hey, I should send it to them with a thank you note. And I sent them the paper and didn't hear from them didn't hear anything. And then another event came up that was in conflict with a annual event that they were responsible for and they needed more staff. So they called me up and I thought this is great. I'm patting my resume when I get out of school. I'm gonna have all of this to put on my resume. And they had me sit down and fill out tax paperwork because they were paying me. I'm sorry, you're paying me. I was gonna volunteer. So I became what was affectionately referred to as a weekend warrior when they had they had events, they, you know, they had a small core staff of people that worked in the office planning these festivals, and then they would bring the weekend warriors to, you know, round out the staff during major outdoor music festivals. So I've worked the festival Block Party. I've worked a now defunct music festival called the Tempe Music Festival. I've worked OCC Orange County Choppers, they did a festival in the Tempe area of Arizona. I was the very first female quadrant manager for the Rock and Roll Marathon series where I was responsible for an entire section of the marathon. Managing the stages and sound and lighting and all of that. And this came out of me needing to write a paper. And in addition to that, I was working for a nonprofit organization. Ooh, sorry, if you can hear the dog in the bathroom.
Scott Benner 50:38
Say, are you being attacked?
Barbara Westberg 50:40
Yeah. So
Scott Benner 50:43
dogs like ladies in the closet with with a ladder, something must be wrong. You're fine.
Barbara Westberg 50:50
So I'll try and talk over. So my day job was raising money for a nonprofit organization through events. So I've planned marathon training programs and let me see if I can actually convince her that we're not under attack. Yeah, okay. Sorry about that. No, you're fine. Dogs are gonna dog.
Scott Benner 51:25
Yeah. I mean, it's our fault. We put you in a closet. So there's no way she's not like, this isn't what happens usually. boss thinks something's going on. Where she's got to take a poo. And she's just like, lady, listen, I'm gonna do it on the floor. If you don't come talk.
Barbara Westberg 51:42
Unfortunately, our landscapers are here. So we are in full dog emergency mode, yo,
Scott Benner 51:48
oh, my god. Gutter Cleaning at my house. My dogs just run from window to window barking the entire time the gutters are being cleaned. They won't stop. They just I don't know something about the water splashing around in those little tin gutters or whatever they're made of it makes them crazy. Anyway, so let me leave. I'm trying to like wrap my head around, like all of what you've done in your life, like so you do end up just moving kind of from org to org? Or do you stay with a place for a very long time? Or are you kind of like a hired gun? How does that all work?
Barbara Westberg 52:25
So I am a independent contractor for these outdoor music festivals. But then I've always had a day job. There were a couple of times where, you know, I had some space between jobs. But I've worked for two nonprofit organizations. And now I, I picked I picked up and moved across country right before the pandemic and found a job that is absolutely fantastic. But I still plan events in this job. It's interesting. I'm a Marketing and Business Development Director for a mortgage company. And I'm planning an event for our clients a client appreciation event. So even those skills that I learned back in my days at ASU and but I was I worked as a contractor for this organization that did these outdoor music festivals. Gosh, probably 15 years. Well, they called me recently they were doing something here in Texas. And it was kind of at the height of the pandemic. So I said no, thank you, but love that they still
Scott Benner 53:56
thought of you. Yeah, you know, I was contacted once by a person who said that they wanted to put on an event where I was the speaker. And they had all these big ideas. And it was I mean, it was a little overwhelming all the stuff that they thought they were going to do. And I kept saying, like, I don't think I can attract that many people to an in person event. And they were like, No, you can you can I was like, I was like, I felt like I was being tucked into something you don't I mean, and I just thought like, I finally I said, Okay, well, you know, if you think we can get enough people together, that it'll pay for itself. You know, I don't want anybody to like I don't want anybody to work for free. I don't want you know, that kind of thing. And then I it became obvious that the person was like, look like this isn't totally out of the kindness of my heart, like I'll plan the event, but this is how much we're charging and I'm taking a piece of it. And I thought even like I was like well, that's fair that they you know, all that is obviously fair. But then the number they came up with was like shocking to me. And the conversation started going like I think people would pay this much and the I said, No, I'm not doing this. I was like, I'm not like you're not taking in my name, you're not taking hundreds of dollars from people to come to a thing. And it was interesting how they, they put it, I'm not saying this is you, I'm just saying, like, it's making me remember this whole like thing. They're like, Well, if we charge this much, and this many people come, here's how much money you're gonna get. I'm like, I don't care. I'm I'm not doing that. So I left the situation disappointed, because I thought the idea was solid. But I was not comfortable with people having to spend so much money to do something like that. Anyway, it's, uh, I think this is, I think this podcast is a much better way of reaching people to be perfectly honest. But, I mean, I would do it, you know, I mean, like, I can see where it would be fun. Like, I'm trying to imagine myself. And there's all these people that have been on the show that could come and speak as well. And I think it would be cool. And I think it would be helpful. And I would love to gather up a bunch of people with diabetes and let them all be in one place and meet each other that I think is that I think would be amazing. But you know, I don't know, it. It seemed like a lot of money to me. So anyway.
Barbara Westberg 56:11
Yes, I definitely the value of being in the community. That was the the difference for me between this is a secret, it's important that you don't tell people you'll be discriminated against. And actually seeing people in the diabetes community, being open about it and being helpful and being you know, it's, it's hard to talk to somebody about how do you manage your diabetes, when you're not saying the word diabetes? And you're pretending you don't have it?
Scott Benner 56:47
Yeah. No, I would love I mean, as you were talking earlier, about, like a music festival, I thought, how cool would it be to just have a, like, a thing where just people with diabetes showed up? And like nobody else? You know what I mean? Like you had, you know, this, this exists? Do I know them? I imagine there's, like, I know, connected in motion does like a camping thing. And I know, places that do stuff like that. But even at that, like, I shouldn't have brought up somebody by name, because now I'm gonna say something that sounds reductive. And I don't mean it that way. But like, I don't mean, like a couple 100 people. I mean, like, I don't know, like something massive, you don't, I mean, in my mind, like, things aren't worth doing until they're like, so many people like even the podcasts, like, if I didn't reach that many people, by now, I'd kind of feel like a failure, I'd be like, I'm not gonna do it. But it's that it reaches so many people that makes it seem it I don't know, it's how it's how the value of the scope of it is part of the value that I think about. Because I know, I mean, you you're a marketer, you know, to like the, the rule of 10s is, is so incredibly real. You have to say something to somebody 10 times before you can get one person to blah, blah, blah, and like, you know, so I always think about, like, if I'm going to help somebody, if I'm going to help somebody live a healthier, happier life, I have to reach this many people to help this many people. And I don't know why that that's how it always strikes me. But no, I know, there are events, and I know people love them, like I do. I'm not and I'm not minimizing any of them. I just like if I do it, I want it to be like, I don't know, I want it to be like a Rolling Stones concert in the 80s. You know?
Barbara Westberg 58:31
Well, the greatest thing about your podcast is that even the offshoots of it, the Facebook page and the comments and things like that, it when I first kind of started tiptoeing into the online existence of diabetes, it was all darkness, and an anger and mismanagement. And there's, it's just so bright and empowering. And then just see other people say, Well, I did this and I did that. And none of it is, you know, nobody's ever showing up to say, this is was the worst day of my life as a diabetic. And you're probably as a newly diagnosed diabetic going to have all these horrible days. It's more of a you can have a great life. And here, here are the practical tips on how it's, you have it a joy around what you're doing and and I appreciate the passion and you're giving of this information to all of us out here who just you know, eat it up.
Scott Benner 59:56
I just like I Well, thank you. First of all, I think All I really do is I apply my attitude to everything. So I, you know, I hope I'm never in a terrible situation like this. But I think if I, if I had a car crash, and I was upside down in the weeds, I'd be joking about it while I was hanging there waiting for somebody to come get me up, I'd be like, Well, I've definitely screwed this up. And I just, I don't know a way to I don't see the value in in. I'm just gonna say what was me. But that seems like I don't mean that. I just mean like, I think what I mean is that good things happen and bad things happen. And I don't change who I am, depending on what's going on around me. So I just keep being me. And then I think that over time, that's, that's kind of permeated the podcast. And then when you collect people together, like as you know, using that Facebook group as an example, suddenly you have 22,000 people there who are all sort of reasonably like minded about attitude, or they see it, and they want to be part of it, they look and they go, You know what I would like to be happy. And I'd like to be able to joke around in a bad situation and not feel the way I feel right now. And in that way, I think it can look like I think this podcast and the community around it can look like hope, and something to kind of strive towards. And I don't know, like as you were talking, I thought, like, what if we could get like 510 1000 people on a fairground, and just get up on a stage and bring people up all day long. And talk to them, you know, just over and over again, just new people, bring them up, let them see each other. Let them be in a place where everyone has diabetes, and it's not weird, and everybody's injecting it dinner. And nobody thinks twice about it. And were like, I think if you could pull enough people together, because what is normalcy? Right, like, normalcy is just the it's the, it's, it's most people doing a similar thing. And so if you brought together 10,000 People with type one diabetes, then type one diabetes is normal. And then you could go back into your own life and not worry about it when you don't see it around you all the time. I do think kind of like virtually that is what this podcast is a little bit too. But I think it's a lot of things. I don't even know that I'm the best person to tell you what this podcast is. Which is kind of odd. That makes sense.
Barbara Westberg 1:02:31
Yeah, yeah. And I love that you've got things categorized so that you can kind of find your way through. Because there's a lot of content out there.
Scott Benner 1:02:42
It got too big. Yeah, I had to do something. It was because my answer just listen to the podcast that started not being so you know, so possible, you know, Episode 250 and 300. And even the other night, I was buttoning up an episode that'll go up soon. And you know, I mean, I start every podcast the same way for years. I'm like, Hello, friends, and welcome to episode and I did that the other night. I said, Hello friends and welcome to episode I tripped over my words. I was like 650 Like, I was like, wow, was there that many? You know, like, it took me by surprise. And and so I you know, thinking about that when people are coming in from the outside? I know they're going to see those numbers and think, Well, I don't know where to start. And so at some point, you know, we had to give them some idea of where to start. And to be perfectly honest, had a lovely woman named Isabel not contacted me once and said, Do you want help with this? Like, I would still be trying to do it on my own. And she's like, you know, these, she's like, these episodes go together. And these go together and these go together. And I was like, This is what I need. I need a woman I need somebody with some organizational skills to to look at it and not only organizational skills, barber but I'm so busy making the podcast. Like I don't even know what it is sometimes. Like there are times when people ask like the other day someone said online Has anyone been on who has Lada? And in my mind I thought yeah, probably like a dozen people. But if under penalty of death, I couldn't have come up with watch episode they were in like I did not I cannot. I'm the worst person to tell you about the podcast. I can make it I just I can't keep track of it. I hope one day that it gets big enough that I can put at least a tiny organization around it because I do think it would help it grow more. If there were some more people facilitating even little things like social media posts or understanding that episode 640 Whatever has, you know, someone in it with LADA? I don't know like that, that may be will never happen, but if you dropped a million dollars on me, I would definitely hire a couple of people. You know what I mean? Oh, yeah. Anyway, I don't know. So this thing helps you when did you find it?
Barbara Westberg 1:04:58
Um, Probably, it was definitely during the pandemic.
Scott Benner 1:05:05
What made you move during the pandemic? Were you moving towards freedom? You said, I heard you here to say, Texas, were you like, I don't want to be locked up or what made you move?
Barbara Westberg 1:05:15
Oh, my husband and I met and married in Dallas, and then move to Phoenix. And that's where I went to school. A little bit. Well, we, when we were in our 20s, the one thing we agreed on was Austin, Texas is the greatest place on earth. And it didn't seem like a practical thing for us to move there. And so we agreed we would retire to Austin one day. And then after my mom passed away, I kind of didn't have my mom around the corner. So it was like, Huh, I'm living here in Phoenix. I have a great life. But what I really want to do is retired Austin, maybe I should just move there and set myself up for success. So that when I retire, I'm already living there. Like, why would you put what you want most in your life on hold until you retire?
Scott Benner 1:06:22
Yeah, I think about that, when I'm saving money for my kids all the time. I always have that feeling in the back of my head, like, my wife and I are really hard workers. And we don't do much with whatever we have we make a pile you don't I mean, we try to keep it Keep it keep it because I think in our hearts we were like, like, even though this feels incredibly, I don't imagine this would happen is what I'm saying. But what if our ends up being like a near dwell? And like, I want to be able to leave like, like finances for to manage her diabetes with. And then once you have that thought you think but I also have another child, like how could I leave money to one kid not to the other kid. And so then my life becomes this like pursuit of making a pile as big as I can to give to my children. And always in the back of your head, you're like, Well, when we retire when we get this done, then we'll do this. And I realized what's going to happen is I'm gonna get so old, it's not going to matter to me anymore. And I'm not going to want to do those things. And then my whole life was me building an anthill to give to somebody else. And so I'm trying really hard to be more like you. And I'm very, very impressed that you did that. How old? Are you when you did that?
Barbara Westberg 1:07:31
Um, I was 49. Yeah,
Scott Benner 1:07:35
good for you. That's excellent.
Barbara Westberg 1:07:38
And then had a complete career change, and then the pandemic hit. And it was like, Oh, wonderful. I'm in the city of my dreams, and not leaving my house. I'm not making any friends. I'm not meeting new people. I'm not going to concerts, and you know, the greatest musical city in America. I'm just sitting at home listening to podcasts.
Scott Benner 1:08:08
Well, at least it's my also, would it have helped you to know while you were listening to my podcast that if I ever go to a live musical event again, the first one I want to go to is Gary Clark, Jr. and I know he he lives in Austin. So that's what made me think to say that to you. That would be the that'd be the that would be my dream. If I if the next time I go to see live music. So
Barbara Westberg 1:08:31
Well, there you go. Now we have the location for your
Scott Benner 1:08:34
I can come right come to it.
Barbara Westberg 1:08:37
And keynote speakers leading up to the Gary Clark Jr. Musical chairs on top of the days of education. So you're
Scott Benner 1:08:49
saying that because you've made these things before, and you're like, we could probably make that happen? And I'm thinking like it never happened. I do. I do think though. Like, I wouldn't do it in a in a classic way. Like if I had an event like that. I don't know that I wouldn't just keep bringing people up on stage and just keep talking. Like, there's a part of me that realizes that some of the best episodes that Jenny and I make are when Jenny and I just start philosophizing about diabetes. And even when we're not talking about something specific when we just sort of like, it's almost like, it's not really like, it's not flight of fancy but it's, you know, you start a conversation, you see where it goes, you don't worry so much about what the perceived topic of it is, but almost like what ideas can we mind from this conversation? Like new ways can we think of to do things or examples that might click in people's heads? Like, I don't know, like, in my mind, it would be like, I don't know, like a like a live Oprah Winfrey, except I'd be Oprah. And then and I wouldn't give you anything. And then people would just keep talking and talking and enjoying it. So musical breaks would be nice. But I don't know, I think that I guess that's actually what I'm doing with the podcast, if I'm being perfectly honest, it's just bringing people out having conversations, I got pitch somebody the other day, and I was like, I don't want to do this. Like, I don't want this person who's been in the diabetes space for so long that everything they say, sounds rehearsed, and they know what they think. And you try to like, you try to go down another pathway and have a different conversation, and they won't go with you because they're worried of who they're going to offend. Or I would just rather rather talk to you, and, you know, other people who have diabetes. To me, that makes more sense.
Barbara Westberg 1:10:41
It's, it's fun, it's fun to hear real live people who might be your neighbor. It's great to have people who are trained, as well as people who are actually living it. For me, one of the things that I, when I learned about the podcast, I was like, oh, it's not for me, I don't have a kid with diabetes. And then I, I thought to myself, do you have any idea how ridiculous that sounds? Course it's for you. So and honestly, I, I can't even imagine what it might be like for a parent of a newly diagnosed diabetic child. You know, when I was diagnosed, there wasn't much they could do. So you know, you got sent home with a couple of guidelines. And now you actually have choices and options and the pressure to research and find the right thing for that.
Scott Benner 1:11:46
It could be Yeah, yeah.
Barbara Westberg 1:11:51
I mean, even if your warranty is up on your insulin pump, and you're like, oh, do I just go with what I know, do I stick with that brand? Do I try something new? You could go down a rabbit hole for days before pulling a trigger, and then still not being completely sure that you made the right choice, right?
Scott Benner 1:12:11
No, I agree. It's, it's a wealth of possibilities. But if you don't have somebody to like, stand in front of you go, Look, here's this one. And here's this one. Here's the differences. You know, which makes more sense to you? What do you care about more? Okay, great. Well, then try this. And now the companies are finally doing like, like, they're doing free trials, which I don't know why they couldn't do that in the past. But I think that was more of a insurance thing. Or I'm not even sure like, how it's gotten better. But I know, Dexcom and Omnipod are both offering free trials now. Which I think is amazing. Because I would like the comfort of trying it and saying it's not for me, you know, not the feeling of like, I have to decide and then whether I like it or not. This is my insulin pump forever. You know, like, that's not fair. It just
Barbara Westberg 1:13:03
unless you have a million dollars and can just say, Oh, not for me right now go buy this other one completely out of pocket. Oh,
Scott Benner 1:13:11
whimsical, like, Oh, whatever. Yeah, I mean, most people can't do that. Even if they could, they shouldn't have to, you know, it's uh, but it's interesting, the way you put that, like, when you were when you were diagnosed, there was one option. It was this, do this pee on that. That's diabetes. At least there was nothing to worry about. You knew you were doing the only thing that existed. Right. Right. Right. Wow. I know that you came on because you have an interesting career. But and we didn't talk about it at all. But I don't you listen to bias, you know, I didn't care. Although I did recently, based off of that call for people with interesting careers, did a really cool episode that nobody's heard yet with a truck driver, which I thought was neat. A woman who was a backup singer for some pretty great bands years ago. And a stripper. So it was smart to ask for people with different jobs. But I found your conversation interesting for a completely different reason. I appreciate you doing this. Is there anything that you wanted to say that we haven't talked about that? I haven't gotten to?
Barbara Westberg 1:14:20
Um, well, we definitely didn't talk about my career at all. But again, it's been so great talking with you. I don't even care.
Scott Benner 1:14:32
I'm glad. Yeah, just I appreciate I want to make sure we didn't like leave anything out diabetes wise that that you wanted to bring up? I didn't even ask you a lot of things. I normally ask people about your kids. And if there's you know, did you end up being autoimmune with your children? No, no.
Barbara Westberg 1:14:53
I am. I am the lonely diabetic and in my family Like, I used to joke that everybody else had to wear glasses. I got diabetes, but now
Scott Benner 1:15:08
I have to go pick up my new reading glasses this afternoon, which by the way, I thought I last went and bought new ones and then found which
Barbara Westberg 1:15:18
which, oh, sorry, totally, I completely spaced that my sister had gestational diabetes. Okay. And she. She said, I don't know how you do this. Like, she knew there was going to be an endpoint to her diabetes? Yes. Like, I don't know how you put up
Scott Benner 1:15:38
with this. That's the alternative. That's a problem. Right? So
Barbara Westberg 1:15:42
yeah, well, there you go. Yeah. So I would rather deal with this and deal with it. Well, then to deal with the alternative, right.
Scott Benner 1:15:51
Okay. Hey, do you think that based on the years of how you grew up in knowing now how technology and insulin has changed everything like that? If you woke up one day to a complication? Would you be gobsmacked by it? Or do you think you'd be like, Oh, well, that makes sense.
Barbara Westberg 1:16:07
Um, you know, it's kind of like cancer, it doesn't matter if you've got family history or not, it would be shocking. Yes, yeah. So, um, am I aware that there are things like I, I'm always on top of my screenings, you know, even even my cancer screenings? You know, I'm on top of that. And I don't think anybody's ever prepared for a diagnosis. But it's, it's so common, that, that if you get out of this without some sort of diagnosis in your lifetime, that would be more shocking than, Oh, you you've survived this, or you survived that, are you treat this or you treat that? I don't want to add anything else to my list of diagnoses. But I feel as empowered as the next person in being able to handle it. And it might actually scare my health care providers, more than me to have diabetes as a complication that goes along with Does that make sense? Yeah, they
Scott Benner 1:17:33
even you, you're looking to them, like you're the, the the exception to the rule, right? Like it's just because it's going so incredibly well for you, honestly.
Barbara Westberg 1:17:46
One of my biggest fears was I would get COVID and be on event and nobody would know. What the heck to do to manage my diabetes.
Scott Benner 1:17:59
Yeah. Oh, wow. Yeah, and it definitely wouldn't go well. It really wouldn't. IT management and hospitals is is not not stellar. They're more worried about your emergent problems than the the diabetes takes a backseat for reasons that I don't completely understand. And yeah, and then you could feel incapacitated that that really did run through your head, huh.
Barbara Westberg 1:18:21
Oh, I was absolutely terrified. Terrified. I did not leave my house for a very long time. And my husband is a health care provider. So when he got home from work he would strip in the garage, walk through the garage door into the guest bathroom and shower and I would go nowhere near that bathroom and nowhere near his clothes.
Scott Benner 1:18:53
Barbie married a long time it's easier to get a guy naked than that. You know you don't
Barbara Westberg 1:19:01
Yeah, I have been married a long time.
Scott Benner 1:19:03
You didn't have to trick him you would he would have done it if he just asked. Actually, you know some guys that just do it if you don't ask so. But yeah, you were that worried about it? That's I makes 100% sense to me. I really I'm assuming you're double and triple Vax, you got your booster, got a booster and all that stuff?
Barbara Westberg 1:19:26
I absolutely did. I drove two hours to get my first vaccine. Wow. Because prayer weren't anything available in the area that I was in. So I was committed to that. And I'm just now coming out from under my rock crawling out from under it and going places and visiting family and and hugging people and seeing concerts and also being you know, cautious but no longer hyper cautious.
Scott Benner 1:19:59
I'm starting to feel a little better.
Barbara Westberg 1:20:03
Yeah, a lot better Good.
Scott Benner 1:20:04
I'm glad I just got back from Florida, I went to a baseball event where I was around a lot of people outside, we rented a house with some people. And I mean, not that my anecdotal like story is evidence, but I got on a plane. I went through an airport, I stayed in a house with 20 people, I watched a bunch of boys play baseball, you know, on a giant field where, if I'm, if I'm counting, right, there were six baseball fields. So there were people watching on all those fields, you know, etc. Back on another plane. Nobody got sick. So I, I'm hoping that things keep trending in that direction. But it would be really nice, because I don't want you or anybody else trapped in their house. Especially as you're trying to build, you're like this is it? Right? You're trying to build up a little bit? And then and then get yourself nice and retired and enjoy Austin and, you know, do your thing. So yeah, well, we should all knock on wood that this doesn't go back to the other way. Because if they they locked me in here, one more time, I'm gonna, I'm gonna be like, I lose my mind. I'm just starting to get like a rhythm to my life back again. You know what I mean? Like, it got so weird. We're just 24 hours, turned it into another 24 hours didn't even matter what day it was anymore. And something about that was not good. For certain. I'm starting to feel like, this is the weekend. These are the weak days. You know, these hours are when I work these hours. And when I don't like I'm finally getting that that kind of delineation back again. And I think it's really necessary. So anyway,
Barbara Westberg 1:21:46
I turned 50 during the pandemic, and you know, hit I'll always invent envisioned a big trip. And I joke with my husband that for every month, passed my 50th birthday, the trip is just getting more and more grounded. Honestly, yeah.
Scott Benner 1:22:08
He better be You better be saving money off, right? You're gonna go get go hop and across Europe and do something really amazing. All right. Well, I really appreciate you doing this. And taking the time, I had a wonderful time speaking with you. And I can't thank you enough for for telling me Elvis and sharing these things with me.
Barbara Westberg 1:22:26
Oh, thank you. I appreciate what you do. Big fan?
Scott Benner 1:22:31
Oh, are you? Does that actually feel like that? Like that I'm a fan know that you just don't like I am weirded out that we're just not two people talking that you see me as like something other than just like a guy.
Barbara Westberg 1:22:47
Oh, like I've elevated you to celebrity status,
Scott Benner 1:22:50
or you shouldn't do that is what I'm saying? You most assuredly should not do that. The rest of my day, you would not want to be involved in is very boring. So yeah, I'm
Barbara Westberg 1:23:02
just trying to get you to hire me to do this big juicebox event.
Scott Benner 1:23:07
Alright, if there was money? If there was money, I think I would I really do. I, I I'm so stuck between the idea that you can't make something grand without money, that I don't have the money to make something grand and that I would have to charge people to do it. Like there's I'm stuck in that space. I don't know how to push myself beyond that. But maybe one day, I'll figure it out. I don't know.
Barbara Westberg 1:23:32
And now that you've put this out there, I'm sure the answer will come back to
Scott Benner 1:23:39
you. It's possible. I've never said it out loud on here before I don't think. So. There were people sending me plans and breakdowns of how it would go. And I was like, ah, seems like a lot. I'm more comfortable just like, you know, jumping on Zoom and talking to a few 100 people and being done. But you know what I'm saying though, like you I mean, if you've been involved in these things, they start saying like, imagine if 1000 people came and they all paid $300 Like, that's how they start. And you're like, oh, that sounds like $300,000 You know, and you think like, well, that would pay for the event. I could pay speakers and people could make money and you know that that would be good. But then all in the back of my head all it feels like is taken $300 from somebody to tell them to Pre-Bolus and let them have a conversation with other people with diabetes. And that seems wrong to me. So, I don't know. We'll figure it out one day or not. Who knows? The podcast gets big enough. It won't even matter. Just keep doing it like that. Well thank you very much. I appreciate it.
A huge thank you to one of today's sponsors, G voc glucagon, find out more about Chivo Capo pen at G voc glucagon.com. Ford slash juice box. You spell that g v o KEGLUC AG o n.com forward slash juicebox. Don't forget to get yourself a Contour Next One blood glucose meter at contour next one.com forward slash juice box. And of course touched by type one.org is where you'll get those tickets to the upcoming dancing for diabetes show held in Orlando. Beautiful facility, head over and take a look
thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. If you're not listening in a podcast app, or an audio app like Spotify, Apple podcasts or Amazon music, you should head over to one of those apps right your phone and check it out. It's a great way to listen to a podcast, find the show Juicebox Podcast label and diabetes. Just hit subscribe or follow depending on which app you're in.
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