#1204 Eversense CGM

May 22, 2024Scott Benner

Mary has type 1 diabetes and uses the Eversense CGM. Mary is an Eversense Ambassador.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome to episode 1204 of the Juicebox Podcast.

On today's episode we'll be speaking with Mary she's in her late 30s diagnosed when she was 18 years old. We're going to hear her story and then Mary is going to talk a lot about her experience with the ever since CGM. Nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. Don't forget to save 40% off of your entire order at cozy earth.com All you have to do is use the offer code juice box at checkout. That's juice box at checkout to save 40% at cozy earth.com. If you're looking for community around type one diabetes, check out the Juicebox Podcast private Facebook group Juicebox Podcast type one diabetes, but everybody is welcome type one type two gestational loved ones. It doesn't matter to me. If you're impacted by diabetes, and you're looking for support, comfort or community check out Juicebox Podcast type one diabetes on Facebook. If you have type two or pre diabetes, that type two diabetes Pro Tip series from the Juicebox Podcast is exactly what you're looking for. Do you have a friend or a family member who is struggling to understand their type two and how to manage it. This series is for them seven episodes to get you on track and up to speed. Today's episode of The Juicebox Podcast is sponsored by Omni pod and Omni pod makes the Omni pod five and the Omni pod dash. If you're looking for the freedom provided by a tubeless insulin pump, you're looking for Omni pod Omni pod.com/juice box this morning, like every morning, I woke up and started my day with ag one you can as well drink ag one.com/juice box when you use my link, you're gonna get some free stuff that I'll tell you about later. And you'll be supporting the Juicebox Podcast drink ag one.com/juice box links in the show notes links at juicebox podcast.com to AG one Omni pod and to all of the sponsors.

Mary 2:19
My name is Mary I'm known as T one D artistry on most platforms. I was diagnosed with type one diabetes in 2003. I have a soon to be 10 year old. I'm married and I work in tech. Okay.

Scott Benner 2:38
2003 How old were you then?

Mary 2:40
I was 18. I had turned 18 In May diagnosed in October.

Scott Benner 2:46
Wow. Was there any other type one diabetes in your family?

Mary 2:50
Not a one. Nope. Nothing.

Scott Benner 2:53
How about other autoimmune issues like celiac or thyroid? Do you have any or is there any in your family?

Mary 2:59
I do have some my diabetes was like the I guess you could say the peak. And then it just started tumbling from there. So six months after I got diagnosed with glaucoma. And then a couple years after I had my son, they started ticking on my thyroid said I ticked off for graves and Hashimotos not really sure how you took off for both but that's what they told me. But so I do take medicine for my thyroid. My stomach had some gastro gastro what is it called as a gastro paralysis.

Scott Benner 3:35
They say you have gastroparesis.

Mary 3:37
Yes. gastroparesis. That's what it is that delayed emptying that happens. Can

Scott Benner 3:42
I ask you a question? Yes. Is that something that started a long time after your diagnosis? Or is that been with you since your diagnosis? Like trouble with your stomach digestion, that kind of stuff? I

Mary 3:54
would say that came on with it. But I didn't get an official diagnosis until after having my son. Okay. Who I was going to before when I would complain of issues, they would just say, Oh, it's because your numbers are high.

Scott Benner 4:10
So Mary, I'm going to share something with you. And I want you to keep in mind that I am not a doctor of any kind. Okay, yeah, your pancreas does more than just make insulin, it's actually creates a number of different digestive enzymes. And a lot of people with type one diabetes can see digestive issues like stomach pain. When they're eating, they don't eliminate Well, often you'll see constipation followed by diarrhea, I'm sorry, this is going this way. If any of that sounds common to you for your situation, I'm going to suggest to you that you just get an over the counter digestive enzyme and try taking it with your meals for a few days and see if it doesn't help.

Mary 4:49
I do take some IB guard. Oh, what is that call? IB guard. And that that is it's like night and day. So of course is not medical advice.

Scott Benner 5:02
I barely got through high school. You don't have to tell me this isn't. So I don't know what I regard is I'm going to look it up. But what I'm going to say

Mary 5:09
to you is the one in the green box.

Unknown Speaker 5:11
I found it.

Scott Benner 5:12
So that's for abdominal count me see what's in it.

Mary 5:16
You're like it and it's a concentrated peppermint oil.

Scott Benner 5:20
Oh, yeah. Listen, between you and I, you don't have to listen to me. But I'll send you some at the end of this. I'll send you some episodes about digestion, gut health, stuff like that. It's it's not an expensive lift. It's over the counter. You try it for a few days. And if you don't see anything worth it fair enough, but it very possibly might clear up a lot of your

Mary 5:40
issues. Works for me. I'll definitely take a look into that.

Scott Benner 5:44
I will tell you more about it afterwards.

Unknown Speaker 5:45
Oh, sure.

Scott Benner 5:46
So you're 18 years old, you get type one. How do you so how I'm trying to do the math on that. How long does that 2003 was 21 years ago? So you're? You're 39? I will be this year? Yep. Happy birthday. Okay, so

Mary 6:01
next month? Yeah. Oh, is it? Yeah.

Scott Benner 6:04
Oh, I'm not till July. But I'm older. I'm not looking to be older. So I'm not going to celebrate exactly the same way as probably but what I want to know is like, what was management like back then? Was it a pump? Was it a glucose monitor? Like, how did they start you?

Mary 6:19
It was MDI, so my diagnosis actually getting diagnosed was very traumatic. I was in my I was at one campus and the dorm kept going to the nurse on campus. As she kept saying, I had a 72 hour bug. This bug continued, it did not go away. It progressed to me throwing up three times a day. You know, drinking everything in sight and having no idea what's going on not eating and still throwing up to the point where it was like the pink, the stomach bow and stuff like that. Yeah, it was crazy. So

Scott Benner 6:53
you're in DKA. And you think you have a stomach bug? Yes. Okay. I

Mary 6:57
was full blown DKA and nurse on campus kept that where you know how they have the little offices on campus? She was like, No, it's just a stomach. It's just a stomach bug. It's just a stomach bug. And I'm just like, it's not going away.

Scott Benner 7:09
Yeah. Oh my gosh, did you end up unconscious? Did you finally go to a hospital? What did you do? Every day on my private Facebook group, I see people talking about Omni pod five and how much they love it. Maybe you've seen people talking about Omni pod too and thought, Oh, I wish I could have an experience like that with an insulin pump. If you have felt that way you very well may be experiencing foo, which is of course a fear of missing out on Omni pod foo is often marked by symptoms like wishing that you could wear your outfits that don't have pockets in them and dreaming about walking past doorknobs and cabinet latches without getting tubing caught. Well, if you've been fantasizing about jumping into a swimming pool, without disconnecting from your insulin pump first, I have great news for you. You don't have to suffer from flu any longer. So to Stop stuffing your insulin pump in your bra and down your shorts and head to Omni pod.com/juice box right now to get rid of that flu. See what everybody's talking about. My almost 20 year old daughter has been wearing an omni pod every day since she was four years old. You can to Omni pod.com/juicebox Check it out.

Mary 8:22
Well, the end of the second week, I ended up waking up in the middle of the night to throw up and that I called my mom and I was like you have to come get me. So she got off. She came and got me. I fell asleep before we got to the railroad tracks were that were only two blocks away. So that clued her into that she's really really sick. She picked up my grandmother, we went to urgent care. The doctor there I told them, hey, it's about that time gonna throw up again. And he just gave me this look like how do you know you're about to throw up? And I was like, I feel it. It's the same time I've been throwing up for the past two weeks. He gives me the petri dish and I'm like, that's not enough. And he's like, Well, you can go to the bathroom but leave the door open. Fine, threw up everywhere. I guess the volume, the smell clued him in. And he's like, I have one more test for you took my numbers they were hired than the machine would go. He looked at my mom and said Your child is very sick. She has to go to the hospital right now. Do not stop for anything. If you don't feel comfortable, then we'll call the ambulance. The hospital was only a mile from the urgent care. So we went straight there. You

Scott Benner 9:36
think he smelled the ketones?

Mary 9:37
He had to Yeah, because it's that, you know, it's that pungent smell. But at the time, I had no clue what it was.

Scott Benner 9:44
Oh, it's crazy. Like how you made it two weeks like that at school?

Mary 9:48
Yeah, I just was on a I was on a decline for the two weeks in that last week. It was just awful. They told me that had I went to sleep that night or went back to sleep that The day that it would have been in a coma and probably wouldn't have woken up.

Scott Benner 10:04
Yeah, my daughter was very close to a coma when she was diagnosed. She was too, but it was crazy. We just got lucky. And very similarly, actually, I said to my wife, I think Arden's breath smells weird. I've been meaning to say that to you. Yeah. She asked me how and I said, I don't know. I think it smells like metallic or fruity or something like that. And then my wife was like, Oh, my God, I think she has diabetes. Like just like that. Yeah. So yeah. Oh, I'm so sorry. Is that a? Is that a thing that sticks with you? Are you able to gotten past that and all these years? Thank you don't I mean, do you still have like, you have memories of it that sit with you? unsteadily? Yeah,

Mary 10:41
it does. It sits with me unsteadily, and then it comes up a lot with my son, how? He's a strong, strong kid, because birth was traumatic, in part due to my diabetes, and having him so he's gone through a lot, even within his first 21 days of life. So for him, he usually doesn't feel bad. If he does feel bad. He's down hard. And we've had two, three, no, three experiences where his sugar has suddenly dropped into the

Speaker 1 11:16
40s. How do you know that? Why are you tracking it? No, because he was lethargic. Oh, and you tested his blood sugar test that he I say, I think and

Mary 11:26
then I took him to the straight to the hospital. Because one time I didn't test him. And I was like, He's just acting funny. He's not themselves. And they tested him and he was in the 40s at the hospital. And then they were just like, the only thing that they told me is that we can continue to watch it. It could be that maybe he'll develop. But we don't know. Thankfully, it only happened when he was those two, three and four. Okay, it was so weird is two, three and four. But then after that he's been good as far as that goes. But like when he's sick, and he's not acting like himself, he's lethargic or anything changes, automatically tests just out of fear of not testing, then something actually is wrong with him. Do

Scott Benner 12:11
you ever considered getting trial net for him to see if he has auto antibodies for type one?

Mary 12:15
Yes, yes, I have put in order for that so that we can do that. Oh, good.

Scott Benner 12:20
I'm glad. I hope it'd be a good news, but I'm glad you're looking. Yeah. So okay, so they let you out of the hospital. MDI, how long does MDI go on for until you like you eventually get a pump? Is that the first technology you get?

Mary 12:33
Yeah, I did MDI, so I got diagnosed in 2003. I had him in 2014. I got a palm. I believe it was 2016. Right before he turned three. Because I had got sick, I had DK another DKA after I had him. And I was like, That's it? Absolutely not. I was like, I'm gonna do everything that I can to make sure that I'm here that I'm healthy to take care of him. Because if I'm not here, who's going to take care of him? Right? Yeah, nobody's going to take care of him like his mother. So I was like, I have I had a fear of the pump. I'm not gonna lie. I had a fear of it. Tell me why. Well, at that time, there had been incidents of people like rolling on them. I had a lady that actually lived. Well, I didn't know her directly, but I knew someone that knew her. And she happened to roll over on hers. And dose Oh, give

Scott Benner 13:31
herself Oh, back then. You could just push a button, I guess, ya

Mary 13:35
know, the technology wasn't where it is now. So and it was like, at that time, I was like, Oh, I'm gonna get one. And then that happened. And I was like, absolutely natural way again, but then after I had him, I was like, Look, technology's better. We're at a better point in life. Let's do it. And I first went on to I've done Omni pod T slim and then back to Omni pod.

Scott Benner 13:54
You're on Omni pod now. Yeah, yeah. Use the dash. on five. Oh, no kidding. Well, you run it in manual mode. Yes, yeah.

Mary 14:04
Yeah, I've had the regular dash and then five.

Scott Benner 14:07
Gotcha. It's funny how parents, especially moms, like measure their lives. You're like in 2016 I got a pump when my son was three. Yeah, go like she's measuring it against his age. It's so so nice. Because he

Mary 14:19
was at my appointments because he'd be in the stroller and go with me to all of my doctor's appointments.

Scott Benner 14:23
Is it fair to say that even though you had some scary stories back then you looked at the big picture got that next DK and said to yourself, like I have to push past my fear and go to this technology? Oh, yeah. 100% justifiable Gotcha. Okay, that's what got you there. Okay. So then if that's what got you there. I have to ask you, because I think you've done something kind of miraculous actually, you've made a leap with your CGM technology like you're here today to talk about the ever since CGM. I'm going to ask first, which CGM had you used had you use CGM previously to ever since

Mary 14:59
I was first introduced to CGM. So my doctor's office I did was Medtronic hopes that the first one called like night guard or something. Oh, or night guardian, whatever it was they stuck on you at the doctor's office. You work for like a week, and then they took it off.

Scott Benner 15:17
Yeah. Oh, I don't know that. But Guardian is there, I think was there, CGM.

Mary 15:22
I did that. And I was like, Oh, this hurts. I don't like this. I like know what my numbers are. But at that time, they didn't give you the information. You just hooked it up and brought it back. They didn't give you anything else to go with. So then after that one I wore I did Dexcom. I was on four. I've done Dexcom four, five and six. And I've done freestyle. Wanting to believe

Scott Benner 15:49
rice. Okay. Yeah. So how do you make like speaking of leaps, I think it's fair to ask the question like, when you said to yourself this ever since thing is implantable, that that feels like a leap to you. It's important to me that the supplements I take are of the highest quality and that's why for the past number of years, I've been drinking ag one. Unlike many supplement brands, ag one is researched and developed by an in house team of scientists, doctors and nutritionists with decades of experience in their respective fields. I know I can trust what's in every scoop of ag one, because ag one is NSF Certified for Sport. One of the most rigorous independent quality and safety certification programs in the supplement industry. Ag ones ingredients are heavily researched for efficacy and quality. And I love that every scoop also includes Folate, Magnesium, and ashwagandha for stress support. So if you want to replace your multivitamin more start with ag one, tri ag want to get a free one year supply of vitamin d3 k two and five free ag one travel packs with your first subscription at drink. Ag one.com/juice box. That link again is drink a G one.com/juice. Box. When you click on the links, you're supporting the podcast, check it out. Oh, absolutely.

Unknown Speaker 17:12
Absolutely.

Scott Benner 17:13
What was the conversation that you had with your with yourself like and then how did you move through it?

Mary 17:18
I was at the point that I felt like I wanted something more long term. I just knew that at the day and age that we were at at that time. There had to be something that lasted longer than two weeks a week. Or I would have a failure and it would last two days. Yeah. Things like that. So I did digging on the internet dug and digging, digging, and I found it. And I immediately contacted them and was like, send me what you have anything within four hours of where I live. And I will go

Scott Benner 17:50
okay, uh, you were willing to travel to do it. Even if you had to. Oh, yeah. Was this very early in the beginning? Have ever since when you first heard about it, or how long ago was this?

Mary 17:59
I started and 2020 21. Okay, was 2020 2021 Yeah.

Scott Benner 18:07
Do you think you've been using it for like three years?

Mary 18:10
Yeah, I'm three. I'm going on my Yeah, I'm on three years. Because it was during that pandemic. Okay. That may have gotten, I think we started in 2020. And then I got it inserted. I got a central placement in 2021, I believe is how that went. That

Scott Benner 18:30
first insertion. Are you nervous? And how? How did you find the experience? Like can you talk me through it?

Mary 18:39
I was very excited about it. I was like I've gone through so much in life at this point, that going to the office to get a sense of placement didn't bother me at all. My doctor is actually near the DC area. So it takes like an hour, hour and a half to get over there. So I took my husband and my son, of course they couldn't go in because it was in the middle of the pandemic. So they stayed in the car, but we made a day of it and just made an experience of heading to DC afterwards. And I went we went in we went over pros and cons things like that. how I felt about it. No, my arm did the placement. And then I was good to go. We hooked everything up to my phone. And I was good to go.

Scott Benner 19:29
How about that? How many times do you think you've had a sensor replaced? Oh,

Mary 19:35
let's see. Because the first one was 90 days. I think I had 390 days and 290 days. I'm actually due next month to go get another 180 day. Yeah,

Scott Benner 19:51
they're six months now huh? Yeah, that sounds crazy. What's the process like you said they numbed your arm obviously they have to make a baker Have an insertion point. So

Mary 20:01
is that painful? No, because I'm numb. Okay.

Scott Benner 20:04
And then how about afterwards? What does it feel like when when the numbing agent goes away? What are you left with?

Unknown Speaker 20:10
Nothing.

Mary 20:11
I don't feel anything. No, I like it's at tender. It doesn't because they're not in there long. Like it's literally they just make this they make the insertion point, pop it in. And that's it. So it's not like it's just in, there's no stitches or anything like that. It's just some tegaderm that goes over.

Scott Benner 20:30
They just like put a little seal on it, and then it heals up. Yeah, yeah. So

Mary 20:34
it's not so there's not a lot of pressure or movement or manipulation or anything like that. So my arms fine afterwards. How long

Scott Benner 20:43
do you think it is? Until it's healed over? I would say under a week for you under a week. Okay. Yeah, that's amazing. So I guess you're saying painless, like the, I guess maybe the injection that numbs you, you might feel but it sounds like the rest of it's pretty good that it's in there. Now the process of using it. Right? So you're wearing the transmitter and the transmitter of what kind of goes on over top of where the sensor is inserted? Yes,

Mary 21:09
do you got a silicone and he said, and you can change those out daily or as needed. And you just place that over top of where your sensor placement is. And then it reads back to my phone. Interesting.

Scott Benner 21:23
So the adhesives different, right? So you, yeah, cuz everybody's thinking right now about the adhesive on their pumps, or their CGM or whatever. But so it's silicone base, so gentle on your skin is that they very,

Mary 21:35
very gentle. And I can take it off and on. So that's the best part of it is I can just move it like, say, want to put a new one on one if I don't like the way it looks, or the biggest thing was when my son knocked it off the first time because he's knocked off everything else. And he already knew that, you know, if I knock it off, Mom has to order a new one. We have to go through this process and everything else. So when he knocked it off, his eyes got huge. And I was like, No, you're fine look, and I just put it right back on goes right back. You're okay. And I was like, Yeah, that's it. That's it. And I was like, Yeah, that's it.

Scott Benner 22:10
We're good. So then the transmitter basically. So the silicone adhesive goes on your skin, and the transmitter just sticks to that. And if it pops off, or you can take it it doesn't have to come off by mistake. Like you could say to yourself like I'm getting a shower, I'm taking this off. Absolutely. Come out. Tell yourself off pop it right back on again. Absolutely. No restarting. No. Anything new. Yeah. Oh, I see the value in that for sure. What's the value been for you? Going to two ever since within an inserted CGM? What's the difference maker for you? Why do you keep doing it? I guess, for

Mary 22:42
me ever since my ever since II three is such a huge part of my life. But it's also something I don't have to think about. I don't have to worry about it. I know that I go for my sensor placement. And then I don't have to fool with it again. It's all in once it's in, it's in. So I just put my transmitter on, change it charge it call it a day, I don't have to constantly worry. Is it gonna get knocked off? Am I gonna damage it? Is my son gonna knock it off? And I'm gonna hit a doorway and knock it off? Is it gonna work? It works in the accuracy, unbelievable, unmatched across the board. And those are peace of mind points that you don't think about ahead of time. But then later, you're like, Oh, I know when I see this number. This is really what's going on in my body. I don't have to guess like, is it right? Did I roll on it funny? Is it not exactly where it needs to be? Am I getting a false reading? It's so many things that I don't have to worry about with this. Do you

Scott Benner 23:51
get with Eversense? Can you get a compression low? what people would call a compression low with other CGM or does that not happen? No, I don't get those. Okay. And then how do you see the data? Is it on a receiver or on your phone? Or how do you see it?

Mary 24:05
It's an app on my phone ever since app on my phone Nice.

Scott Benner 24:09
Has alarms tells you if you're high or low? You can you set them yourself? Yes,

Mary 24:13
you can set up their alarms, you can do high lows that on body vibe. vibrations, so that's nice. So if I don't want it to alarm, like tonight, I have my son's spring concert we're going to so I'm going to turn my audio alarm off, leave my Bible alarms on so that I still know what's going on. So if something changes, I can go ahead and adjust as needed. Describe that

Scott Benner 24:38
so that for people who don't know the transmitter now, so let's say if you were going to go with your audio alarm set, I don't know. I don't know where your you have your stuff set up my daughter's set at 70 for her low. So if you go okay, cool. So if you go under 70 you get a beep on your phone, but if you shut that off and go to vibe, then the transmitter vibrates When you get to 70

Mary 25:00
Yeah, there's different types of vibrates to let you know if you're heading low, if you're heading high. There's different pulse points. And it's, it's very similar to like a cell phone vibrating, but impulses.

Scott Benner 25:14
Okay? And how do you find that? There's, I'm imagining people hear that some people think that's amazing. Some people think it's irritating, whatever. But like, what? How do you find it? How do you integrate it into your life?

Mary 25:25
I like it. Because there's times we're, like I said, like the concert. I don't want to set off the concert and have everybody looking at me instead of the kids. So I'll turn off the audio, but I still need to know where I'm what's going on with me without having to constantly look at my phone. Yeah. So I know if I'm not getting any alerts. We're good to go. I'm not feeling anything. We're good to go.

Scott Benner 25:47
So a different pulse for hitting a 70. And a different pulse for falling even and one verb different. And you can tell the difference between them. Yes. Oh, cool. That's really amazing, isn't it? Yeah. And

Mary 26:01
there's even one that comes through, like if I need to charge it. So that's good.

Scott Benner 26:06
There's a please like taps or what is it? Because it's dying. Yeah. Yeah. Right. That's so even if it needs to be charged, vibrates in a different way. Yeah, that's wonderful. And you talked earlier about the accuracy, like, you know, for the the way that the the device works. My understanding is when it's first inserted, there's a schedule that you have to calibrate that. And then after that, you calibrate it once a day. That's another thing. I think somebody's gonna be a guy. I don't want to calibrate. But can you talk about how that works in your life? And why it's something you're you're okay with?

Mary 26:39
Yeah, for the first, I believe it's for the first 21 days, you do two calibrations a day, they're about 12 hours apart, you do that. But then after that, it's just once a day. So you can set it up for when you want to when you want to do the calibration totally fine. And for me, I'm okay with it. To me, it makes sense to me because I calibrate with my contour next. And the accuracy is there. Yeah. So if I don't have to worry about accuracy, I'm not going to worry about testing my glucose once a day.

Scott Benner 27:16
account for an extra great meter to write it is it's so good. So you're seeing a lot of accuracy between the Eversense CGM and your meter? Oh, absolutely. That's fantastic. So I mean, I guess like elephant in the room, right? You have it on the pod five. But you can't you can't use it in automation, because ever since doesn't work with it at this time. So I need to know, that's a trade off that a lot of people might say I'm not willing to make but why are you? Why does the ever since means so much to you that you're you're willing to kind of hold off on algorithms,

Mary 27:48
I'm holding off because I'm confident that tech improves every day. So I know at some point, there's going to be a change and at all, everything will work exactly the way it's supposed to. But in the meantime, I'm not willing to risk the accuracy. I'm not willing to go back to second guessing every single number I see. I'm not willing to go back to the irritation on my arm, or wherever my sight is, I'm not willing to go back to failures. And I'm not willing to go back to if for some reason, it does get knocked off not being able to just to simply pick it up and put it back on.

Scott Benner 28:33
Yeah. So you feel like you're gaining more than you're losing. Exactly. Gotcha. And you're pretty confident or hopeful. I guess that one day, it'll all work together. Oh, yes, absolutely.

Unknown Speaker 28:44
All right,

Scott Benner 28:46
I see how you're thinking for sure. Tell me if you would, what you would say to another person, if my daughter came up to you and said, I don't know. I don't know if I want to insert this thing into my arm. Like, how would you explain your experience in a way that would help her to feel better about it or make her interested? I

Mary 29:06
would say if you're worried about having something inside your arm, weigh your pros and cons. Weigh your experiences. How could something like this be more beneficial to you? Okay, even we call like, you know, in the community, we call them naked showers. What if you want to have a naked shower every day instead of once every 1014 days? Like some people are like, Oh, that yeah, that's good. What if you want to be able to change your adhesive daily instead of laying on other products to make them stick in last, you can just use the one you have and change it out when you want a fresh clean one to always have something that's fresh, clean and looks nice. That could also be Another thing, and it's something that you only like set right now they last up to six months. So in a sense, it's something that you would only go do twice a year. Yeah. Versus a standard, what 710 or 14 days,

Scott Benner 30:16
you said you had to travel to DC the first time, but in the time that you've been using it, have you found an office that's closer to you? Or do you still go into that place?

Mary 30:25
I go to him because that's my endo now and like I have a very a great bond with him. So I don't mind the travel. We like I said, we make a day of it. My son comes to the appointments with me, he videos he hangs out he like he's in there in the office. Yeah. When I get my sensor placement placement done, if you hadn't

Scott Benner 30:44
built such a rapport with a doctor, are there doctors closer to you at this point? Do you know or have you never even looked? Maybe?

Mary 30:52
No, I haven't looked. But I could go online because they do have a list so I can request a new list and see what's available. Okay, but I find that I prefer my care in that area.

Scott Benner 31:04
Okay. No, yeah, I mean, yeah,

Mary 31:07
no, it's definitely just a preference. You

Scott Benner 31:09
find an endo you like I know plenty of people drive to their windows for for very good reasons. No, because it's so, so hard. It can be hard. Are you okay with this for like younger people, older people you don't like see a person it doesn't work for in your opinion? Or is there a use case that you think it's not? It wouldn't be great for this?

Mary 31:29
Honestly, I feel like it's good for anyone, anyone that wants something that's reliable, accurate? And they can depend on it. And they can just trust and believe in it. Yeah, I think it's worth a shot to try it. There's no harm in trying something.

Scott Benner 31:46
I love the attitude. Honestly, very. I have a friend who I don't none of us have anymore. He's passed away. But he's no, no, you're very kind. He was diagnosed a long time ago when he was young. And if I look back on his life, the thing that I take from it that drives how I talk to people on the podcast is he just got complacent. And I'm not certainly saying that like, you know, a stick on CGM is complacency. That's all very amazing technology. But like, I think you have to be willing to look at what exists and wonder like, is this the next thing? Like, should I be on this train? You know what I mean? Yeah, because you don't want to get 10 years away, or 15 years away, like my friend didn't go, wait, I should be using what kind of insulin like he just didn't know. You know, he got complacent with what he did. And it hurt it hurt him. And I'm not saying that, you know, using a certain CGM would or wouldn't hurt you. But I do like the mindset. I like the mindset of what's next? Is this better for me? Let me just at least find out like, even if I don't swim, I should know about it. I guess is the the way I feel about it. Yeah, it's definitely

Mary 32:59
diabetes is you know, it's not one size fits all different things work for different people. But being open to at least try something new, across the board, with your care with your doctors with whatever it takes. It's being open to there has to be more than what's right in front of my face. Yeah.

Scott Benner 33:23
It's okay to say no, thank you. But oh, yeah, I wouldn't want you to say, I never looked. Right. That to me is it's just, I don't know, it's how you get stuck and being stuck. Yeah, doesn't end up going well, at some point. So I was gonna ask, it gets funny. I usually ask people about like, does your like husband know how to put this on and take this off, but obviously, in this situation, he doesn't need to know any of that. What the,

Mary 33:46
because I mean, him and my son, they know how to like, just like if for some reason. I mean, of course they don't need to, but they know, they take the little sticker off, put the transmitter to the sticker, take off the other part, put it on the arm, they're good. They know how to check my glucose numbers. They might share my data with my husband. So because he's in military, he works about an hour or so away from me. But then also he's in military so he can be gone different places. So he still checks on me like wherever he's at. So he knows what's going on. So

Scott Benner 34:26
he has that with it. They ever since now, is that what the apps called? And then he can follow you just like that. Yeah. Can he change his alarms? Or does he get them where you get them? Yeah, he

Mary 34:36
can change him. Oh, well, he can he can he can turn them down or anything like that. So yeah,

Scott Benner 34:43
right. Do you find yourself taking advantage of the of that gentle haze of like, like do you find yourself just once in a while going I'm just gonna take this off for a couple of minutes.

Mary 34:53
Oh, yeah. fatigue. Fatigue on diabetes is a huge thing and some people don't talk about it. Some We've all been being embarrassed about it, but it's okay. Like nobody wants to be attached to everything. 24 hours a day, all day every day.

Scott Benner 35:08
No, I hear that. So it gives you a little bit of freedom there just to Yeah, what do you do get into a spot where like, my, my blood sugar is rock solid right now I can take this off for a little bit like, like, Hey,

Mary 35:16
we're coasting. We're good. Maybe I just need to chill. Like, I might have a part change. And I'm like, Oh, well, I'm gonna take that in this off at the same time. Set an alarm and put them both.

Scott Benner 35:28
Everybody chill out. I'm taking one of those naked showers. Yeah.

Mary 35:31
Hey, just you mind to business? I'm okay.

Scott Benner 35:35
Can I feel it through your skin? Like, can you find the sensor? It's pretty close to the top. I guess then. Yeah.

Mary 35:42
Okay. Yeah. It's just like, it's not like something jagged or anything like that. It's, I would say kind

Scott Benner 35:48
of like, if you would feel a tic tac. Okay. Okay. I like that. Have you ever, like held one like or seen it? Yeah. Is it insane? Like, do you do you ever have those thoughts like this, like, couldn't go inside of me, like transmit my blood sugar? Yeah,

Mary 36:05
when I looked at it, I was like, and then I'm a big techie too. So when I saw it, I was like, Well, this is cool. I was like, I like this. Just seeing the, the space of even just from when I was diagnosed, to where we are now just seeing that growth and change. It's

Scott Benner 36:26
astonishing. You know, I tell people all the time, my daughter was diagnosed in 2006. And at that point, it was a meter. They just they were like, here, it was, like, I always say it looked like it looked like it was junky. It felt like it rolled out of a bubblegum machine. Like I put a quarter and it came out a little bubble and I propped it over. It was like junky little meter. And they gave us needles, and a vial of insulin. And they were like, Oh, here you go. Yeah, this is diabetes. And I was like, Okay, your point is so valuable. Like, from that moment till now, my daughter's had type one for 18 years about. It's insane. It just, it's insane that we went from, yeah, I don't know if you know, of course, you know this, right? Because you've had diabetes a long time, too. There was a time in diabetes technology, when something exciting was just a new meter. It just looked Yeah, it wasn't more accurate. It didn't do anything different. It just they were like here, we redesigned the meter. And everybody's like, Oh, my God, finally, there's something in

Mary 37:25
me. Yeah. Anytime I saw something new. I was like, I got it. But it's smaller. I can put it somewhere else. It's, it's better. Let's try it. I mean, as a child, my mom's boyfriend actually had type two. Okay. And he had like that clunky, tan. I don't remember what it was called. But I know it looked painful. He was wincing every time he took his sugar. And it was our took his glucose. It was just a mess. And I was like, oh, remembering that on the kitchen table to this now. Like,

Scott Benner 38:07
big difference. Just crazy. Yeah, I mean, the from, you know, the first CGM to other companies make him then suddenly somebody's like, oh, my god here you can employ. I mean, no kidding. Like, I look at the Eversense. And I think, what is next? Yeah, right. Yeah, it really does make you feel like that. who figured this out? First of all, amazing. And, and what are we going to do next? Like that's, that's all I think about now, especially like, with AI, which doesn't have anything to do with ever since. But like, do you see AI now and you think people are going to start getting like treatment decisions from AI and like information, and this thing could really double over on itself? I'm excited to see how quickly all this moves along. Honestly, technology

Mary 38:48
is amazing. Yeah. And it's long. And then when you have teams that are willing to go that extra mile and think outside the box, just the things that they come up with? Yeah, it just blows me away

Scott Benner 39:02
outside the box right inside your arm? Is the arm where it goes. Are there other places? Or is that where it goes? Yeah, it's approved for the arm. Okay, excellent. And you don't have any trouble wearing the transmitter there. You're happy with where it is? No,

Mary 39:17
I don't even think about it. Honestly. I just put it on and I go, I don't worry about it. I don't think about it. It's it's there. It doesn't bother me. It's not even like it's not even clunky. It doesn't even like set up high. Like it's flatter than my Omni pot. Okay.

Scott Benner 39:34
It's similar shape, but, but more streamline. Yes. Okay. Well, it doesn't have to hold insulin. You said earlier when it needs to be charged. So obviously we're talking about the transmitter needs to be charged. So what's the process? How long does it take how often you have to do it usually

Mary 39:51
was about 1015 minutes and I just when I go take a shower, I just put it on the charger. Never forget sometimes cuz I forget. So then I just take my shower or whatever. And then if it lets me know, I'm like, oh, yeah, I forgot to charge it today. I'll just plug it up and call it a day.

Scott Benner 40:09
That's a good question. I didn't ask. So with the transmitter on, you can get in the shower still? Yeah. Okay. Do you? Can you swim with it?

Mary 40:17
I can. Oh, right. So like when we, we did a big spring break trip to Miami. So when we were at the pool, I just wore it when we went down to the beach, because you know, the beach can get wow, I took it off, I would put it in my bag on the sand. I will go play and play in the water with my kid and stuff like that. And then I will come back, put it back on for a little bit or hold it up to my arm just long enough for me to get some readings to come through, then put it back and go back in the water. Oh, I said that. That's nice.

Scott Benner 40:49
Oh, I see. So you ran back out through the transmitter on got your number and was like, Alright, this is cool. I'm back again. So like testing, but without having to prick your finger. Exactly in that scenario. Excellent. Wow. Am I not thinking of questions that I should be like? What do you know about this device that I don't know enough to ask the question about it. Maybe I got to everything. But But did I miss anything? No.

Mary 41:12
I think people have a lot of fear of the appointment. But they're it's really not. It's not a scary thing. Like I said the first one will the first one he couldn't go to. But then he saw the later ones when he was he was in there with me. And he was only five. And he like my son's in there watching this happened. And no point was he like is my mom. Okay? Like nothing like that. He's just like, okay, like, it's very simple. It's very, something you're in and out. You don't have to doesn't take like, you don't have to be like, Oh, I'm gonna be in the doctor's for two hours today. I have to sit and wait. And I have to stay there for a while before I can even leave or no, you're in and out. That

Scott Benner 41:57
raises a great question. So I saw this video online. And it were an insertion was done. And it felt like I mean, didn't feel like I looked at the video length. It felt like it was under 10 minutes. And I think it was so like from when the doctor reaches for you until you're like I'm out of here is Oh, yeah, there's just a few minutes.

Mary 42:15
Yeah, definitely. It is we talk more than anything else. We talk and chat more than anything else.

Scott Benner 42:21
Does the doctor ever say to you, Hey, I've got more people using this. Like, is it like, do you ever talk about it like that? Because you sound like you are in? Yeah, fairly early on. So are you Yeah, it's his

Mary 42:32
office, he's actually growing with more patients that are using it. I think at the time when I started it with him, it was only like me and maybe one other person. And I believe now he's up to like 10 or 12 people?

Scott Benner 42:47
Do you have a community online of users? Do you know people like through I don't know where you're at Instagram or whatever that are also using ever sense. Are you a bit of an outsider at this point?

Mary 42:57
I have my my team ever since team that I know that you're using it. But as far as the people in my community that's online, that people that I talk to outside of them. So far, they're using other products. But they always ask me like, so do you get this? Do you have failures? Do you have issues with your adhesives and stuff like that? And I'm like that, like you guys really need to try this?

Scott Benner 43:22
Yeah, you're seeing the interest from people?

Unknown Speaker 43:24
Yeah.

Scott Benner 43:25
What about you, Mary, do you think made you more like, thoughtful forward on this? Like, how come you didn't have so many like, Oh, I'll ask 1000 questions, and I'll wait like, How come you were able to do it so quickly? What about you lets that happen.

Mary 43:40
I think it was my mind shift. It was definitely the mind shift after having my son and no one that I needed to find what I felt was the best tech across the board to help me manage my diabetes successfully. And when I went on my deep dive and found ever since I was like, Oh, that's it. That's it. Sign me up today. Like I'll even be 100% honest with you. When I went to my initial endo at that time. This was a different one. She told me that's for athletes. What didn't Put me in coach because I'm getting

Scott Benner 44:19
he says that I don't look athletic do what the hell I

Mary 44:21
was like now it's like I'm doing it. So I went on, filled out my medical necessity and sent it over and said sign it for you very much. Like, it's this is me. It's like that's the thing. I think it takes time. It doesn't happen at the beginning. For most people, it doesn't happen at the beginning. But at some point in your diagnosis. People realize that it's their own diagnosis. No matter what's going on around you. You have to advocate for yourself. Because at the end of the day, you're the one that It's hurting, you're the one that's going to feel good. You're the one that's going to feel bad. You're the one that has to stress about it. You're the one who has to take care of it. And if something happens to you, the only your immediate are the one that's going to feel it the most work. You know works gonna be playing shoot. Yeah,

Scott Benner 45:20
making you're making your mom changes a lot. I know being a dad, same thing. And advocating also means being proactive. Yes, absolutely. Yeah. If you can't just wait till something goes wrong and then speak up like the when you see something out ahead. You know, say I'd like to try. It doesn't matter what it is, by the way. Yeah. It could be a different pump. It could be a different insulin even you might just be. Yeah,

Mary 45:44
I'm trying to switch mine out. I'm like, what else can we do?

Scott Benner 45:48
You tried number of different insolence. Oh, yeah. Did

Mary 45:51
you log Nova log? There was one. I can't even remember what it was. fiaz? Yes. Something like that. And then now more loom jab

Scott Benner 46:00
limbs. Have you find that that works? Well, for you the limb? Jeff? Yeah,

Mary 46:03
I like it. I do like that quicker for you. Yes. Yeah.

Scott Benner 46:07
You don't get the burning. Some people report burning at the injection site. But you don't have that? No, I don't have that's excellent. Use that in your pump? No problem. Yes. All right. Good for you.

Mary 46:18
And I'm very much like, hey, I want to try this. And then my thing is, if I get resistance, like why are you giving me resistance?

Scott Benner 46:27
You know, I had to have a conversation with someone online the other day, she just wanted to make some changes to her kids settings. She said, I'm very afraid the doctor is gonna yell at me. And I'm like, What? What are we talking

Mary 46:37
about? Oh, that's what you're not gonna do?

Scott Benner 46:42
It's like, I'm not getting yelled at, that's for sure. No, no, no kidding. Like, this is a real like a grown person. And they see the need for their kid changing. And they actually have a feeling like if I make a change to this, I'm gonna get yelled at. Yeah,

Mary 46:55
no, that didn't believe me. Like when I would go in, because you remember, before the time of being hooked up digitally, you had to write everything down. they hand you a blank chart. And you had to write everything down. So I would write what I ate, what my numbers were everything else. And he was like, You're lying, really? And I was like, No, I'm not. I was like, I'm telling you what's going on. He was like, There's no way if you did this, that this would be the outcome. And I was like, Well, I don't know how to show you, other than telling you. And if you don't believe me, this isn't going to work. Yeah, come find out. I ended up switching. Then we found out that my thyroid was playing a big part. Oh, because I told him I said, I think my thyroid is something's up and he was like, No, I was like, I'm exhausted. He was like, You're exhausted because your numbers are high. Like it was everything went back to well, it's because your numbers are high. Well, my numbers are high for a reason.

Scott Benner 47:54
Yeah, they did this to my wife, by the way. My wife doesn't have diabetes, but she had a thyroid issue. And they would tell her we should diet and exercise and lose my wife's like, I don't eat poorly. I'm just I'm gaining weight out of nowhere, you know, and I'm exhausted. I'm gaining weight from breathing. Yeah, exactly. Right. And she was ignored by doctors for years. Yeah, yeah. made her feel like she was crazy about it. You know what I mean? Oh, yeah. Are you sure you're not depressed? What

Mary 48:20
like that? Yes. That was the thing more I had one. My primary care asked me he's like, do you think you need to take something? It's okay. And I was like, what I need is to not come in here and be told that I'll be dead by the time I'm 30.

Scott Benner 48:35
Yeah. Is that what you're telling me that they said that to you? No kidding. Oh, yeah. I'm sorry. Oh, yeah.

Mary 48:41
It was. When I first got diagnosed, it was my first appointment. They told me I would never have children because my diabetes was so bad. And that if that's what I wanted, I should think about something else. Because if I was ever to get pregnant, I would automatically lose the pregnancy and whatnot. carry to term

Scott Benner 49:00
communication is just the shaky art at best between people. Yeah, this was at 18 Oh my god.

Mary 49:07
I mean, 818 you're technically an adult, but I was a baby with something completely dramatic, that I didn't see coming. And you're telling me that my life is forever changed. And anything that I ever thought I wanted in life? I'm not gonna have Yeah, and then behind that, they're like, Yeah, DKA again, you keep down this road and you'll be dead before you're 30 That's how it started. Oh, my gosh. And then that makes you go into, well, why am I fighting this? If you're telling me I'm not gonna live

Scott Benner 49:40
if it's all fair to complete if I'm dying anyway, what am I trying so hard for? Yeah, yeah. No, I know. It's the exact we talked about this all the time. The communication form is so important. And yeah, just a couple of words at the wrong time, in the wrong way could send somebody on a path they could never come back from a interview. A lady one time now she was diagnosed more like in the 50s or 60s. But she was in college. And the doctor told her to drop out of school and go home. You're not going to live long enough to have a career and and the doctor also told her, Mary, I'm not making this up. A man is not going to want to marry you. Oh,

Mary 50:19
I believe it. Yeah, absolutely believe it. Because that was one of my initial thoughts. Like that. Who's gonna want to deal with this? No, it's a real thing. And then I met my husband who sisters type one. Oh, he's

Scott Benner 50:32
like the oh, this I already know what this is. Yeah, it was like within a week.

Mary 50:35
He's like, can I give you a shot? And I was like, okay, either. You're weird. I didn't know that. At the time that his sister had diabetes. I was like, What's wrong with you?

Scott Benner 50:43
Well, be honest. Now. You've known him for a long time. He's still a little weird, right? Like, Oh, of course. Yeah.

Mary 50:49
He was like that pins cool. Because I just switched from vials depends. And he was like, That looks cool. I want to do it. And I was like,

Scott Benner 50:58
I don't know about is a big leap. He's not like counting your carbs for you. You don't sit at dinner. And he's like, I think that's 35 carbs. If you do that,

Mary 51:07
no, but he will be like a, Hey, you are going high. You're going low. You You're gonna handle that today. Or he'll show up with candy and be like,

Scott Benner 51:16
take this try to keep you honest, a little bit.

Mary 51:18
I'm like, What are you What do you mean, he's like, you're heading south. And it's not even that he got an alert. It's to the point that he can look at me, and he knows where I'm at or where I'm headed. Yeah. And he's like, Alright, let's do something about that. Let's go for a walk.

Scott Benner 51:31
That's fantastic. I sometimes I'll tell my daughter. I'm like, you're gonna be low in 20 minutes. Yeah, she's like, No, I'm not. I'm like, Okay. And then 20 minutes later, I'm like, guess who was right. She's like, now's not the time. I'm like, okay. Are you Let's go. Now's not the time, Mary because I'm low. Yeah, exactly.

Mary 51:51
Exactly. I can't think straight. I'm shaking on the inside. Yeah.

Scott Benner 51:54
I'm just like, alright. I don't want to be mad at me. So I don't afterwards. That's amazing. Well, I can't thank you enough for doing this. You're delightful. It was really lovely. Talking to you. Amazing to have a good time. Yes, absolutely. You know what? diabetes? Podcasts could be fun. Oh, I

Unknown Speaker 52:11
did I did.

Scott Benner 52:12
I did you hurt? Do you know who I am?

Unknown Speaker 52:14
Of course I do. Oh, okay. Like, I

Scott Benner 52:16
don't know if you ever heard the podcast before or not? Yes, yes. Oh, it's a big deal for you that I'm making your dreams come true. Yeah. Yes, it

Mary 52:24
is a big deal. Because that's one of the things that took me that's one of the things that drew me to your podcast. I remember one of the episodes one of the first episodes I heard it was taking control and not being scared to make changes. Yeah.

Scott Benner 52:39
No, I'm a proponent of it. I really, um, cuz that's the thing. Like

Mary 52:43
they get you in there or not. I don't know if they do now so much. But especially before it was like, This is what it is. This is what you do. And don't deter from this under any circumstances. Like what do you mean? What

Scott Benner 52:56
about when I'm premenstrual or when I'm having my period? or the week after my period? Or when this happens? Or when I get upset or nauseous or I run around a lot or I don't run around a lot like this never changes?

Mary 53:08
I'm in the air I go to a higher elevation. Yeah, it's too sunny outside. People don't understand. They don't understand.

Scott Benner 53:15
Yeah, Mary. I think a lot of people don't know that. Like what happens mostly at higher elevations? You see people get very sensitive to insulin. Is that what happened to you? Yeah, right. Skiing and you're like, low all the time or something like that? Or? Yeah,

Mary 53:29
like I turned my I turned my pot off when I even just on a flight. Oh, you get lower? No kidding. I'll turn my pod off because I will get a low every single time if I leave it on at my regular rate about so I'll turn it down. Yeah,

Scott Benner 53:43
no kidding. Yeah, it doesn't surprise me. Yeah, that's that's really wonder anyway, you you were terrific. Tell me again, where people could find you on like, social media.

Mary 53:52
Alright, tick tock. It's T Wendy artistry and scram to 1d, artistry, and YouTube. It's marry my life, my love.

Scott Benner 54:00
Not very nice. I hope people go visit you. Again. I can't thank you enough for doing this. I really do appreciate you telling me about this. You know, we've been talking about ever since on the podcast or an advertiser. Yeah. And I thought like, I gotta talk to somebody who's actually using it. I I see in my Facebook group after after I started, you know, my relationship with ever since on Facebook, people are jumping on and they're like, Oh, my God, I'm so glad you're talking about this. Like, I wear this but I don't talk about it a lot. Because you know, not you know, I don't think everybody wants to hear my stuff and blah, blah. But a lot of those people popped up and I was like, how about this a lot of people in the background using ever since I didn't realize, yeah,

Mary 54:38
and then you know, if you want to get started or take a look even further, the best place to go is ever since cgm.com, forward slash juicebox. And that's going to have everything that somebody needs if they want to find out to submit their insurance information, get pricing, there's a past program that can help with costs. You know to find out what doctors are in your area or nurses that can put that can set you up. There's different options on how to get the product. So it's definitely worth the at least the look at the link to see what's there.

Scott Benner 55:16
Well, Mary, I don't know if I'll ever be able to afford a PR person, but if I ever can, I'm gonna call you first. So

Mary 55:21
well, I'm always happy to have a conversation whenever

Scott Benner 55:25
you started talking. I said Mary better not have her own link. You're gonna be like ever since CGM slash Mary and I might not know this podcast lady hits juicebox. But it's really fantastic. I can't thank you enough. I really do appreciate it. Thank you. All

Mary 55:42
right. You're welcome. Thank you. This was so much fun.

Scott Benner 55:44
I'm glad I'm glad. Okay, hold on one second. Yeah, sure thing.

If you'd like to wear the same insulin pump that Arden does, all you have to do is go to Omni pod.com/juice box. That's it. Head over now and get started today. And you'll be wearing the same tubeless insulin pump that Arden has been wearing since she was four years old. I'd like to thank ag one for sponsoring this episode of The Juicebox Podcast and remind you that with your first order, you're gonna get a free welcome kit. Five free travel packs in a year supply of vitamin D. That's at AG one.com/juice box.

Mary is an ever since ambassador, and ever since CGM is the sponsor of the Juicebox Podcast though this episode of the podcast is not sponsored by them. Having said that, I'd really appreciate it if you use my link to check it out. Ever since cgm.com/juice box if you are a loved one was just diagnosed with type one diabetes, and you're looking for some fresh perspective. The bold beginning series from the Juicebox Podcast is a terrific place to start. That series is with myself and Jenny Smith. Jenny is a CDC es a registered dietician and a type one for over 35 years. And in the bowl beginning series Jenny and I are going to answer the questions that most people have after a type one diabetes diagnosis. The series begins at episode 698 In your podcast player, or you can go to juicebox podcast.com. And click on bold beginnings in the menu. The diabetes variable series from the Juicebox Podcast goes over all the little things that affect your diabetes that you might not think about travel and exercise to hydration and even trampolines. juicebox podcast.com Go up in the menu and click on diabetes variables. If you're not already subscribed or following in your favorite audio app, please take the time now to do that. It really helps the show and get those automatic downloads set up so you never miss an episode. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. The episode you just heard was professionally edited by wrong way recording. Wrong way recording.com