#1090 Diabetes Breakdown
Scott Benner
Emma is 22 and has had T1D for a little over a year.
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Scott Benner 0:00
Hello friends, and welcome to episode 1090 of the Juicebox Podcast.
Today I'll be speaking with Emma. She is 22 years old and has recently been diagnosed with type one diabetes. TODAY Emma is going to share her story with us. We're going to talk a little bit about ozempic and you're going to hear about some of the frustrations that she has. Nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. Don't forget to save 40% off of your entire order at cosy earth.com. All you have to do is use the offer code juice box at checkout that's juice box at checkout to save 40% at cozy earth.com. When you place your first order for ag one with my link, you'll get five free travel packs and a free year supply of vitamin D. Drink ag one.com/juicebox If you're not already subscribed or following in your favorite audio app, please take the time now to do that. It really helps the show and get those automatic downloads set up so you never miss an episode
this show is sponsored today by the glucagon that my daughter carries. G voc hypo penne Find out more at G voc glucagon.com. Forward slash juicebox Hi,
Emma 1:43
I'm Emma. I am 22 years old and I have type one diabetes.
Scott Benner 1:49
And how long have you had type one?
Emma 1:52
For about a little over a year?
Scott Benner 1:55
This is first Yeah. Okay. Did that suck?
Emma 2:01
For a little bit? It sucked. Yeah, I was in I was in school. I was a junior. And it was right when all the hard stuff was happening like academically. So it was like it was a lot at one time. But yeah.
Scott Benner 2:12
Do you think younger people are like wait, college isn't hard right away?
Emma 2:17
Yeah, I mean, I feel like a lot of universities kind of ease you into it. Freshman year is is a lot about figuring out your life socially as well as academically and, and getting that independence. So I hope I hope that freshman year is easier than junior year. But yeah,
Scott Benner 2:35
I see what you mean. I watched it happen with both my kids. And yeah, but when it's happening to you as a freshman, you don't think oh, this is easy. Right? I didn't mute my phone plug in me giving you all kinds of roles before we start. I didn't need my phone. Sorry about that. Okay, so Okay, so you're at school? Everything's just good. Oh,
Emma 2:56
for diagnosis. Yes. I just graduated. But
Scott Benner 2:59
yeah, yeah, no, I mean, when you were diagnosed, so you're Are you far from home or relatively close.
Emma 3:06
So I'm far I'm from Texas, originally. And I'm in Miami for school. That was maybe the hardest thing like being so far from my parents. I was in the hospital for like, three days. And they were like, constant on the phone with me. And they were like, We can fly down like if you need but I was about to turn 21. And I was like, you know, I just I think I can do this. I don't I don't need you to come down my boyfriend was was in me in the hospital, or was in the hospital with me? For those three days, so and that made it a lot easier. But yeah, having is because it's an in between period where like, you're not quite like a full adult, but you're not like super rely on your parents anymore. So that was a hard, hard time.
Scott Benner 3:58
Plus, you probably don't know about the more frightening aspects of diabetes in the very beginning, right?
Emma 4:06
No, I knew nothing about diabetes. I knew absolutely nothing. Because no one in my family has diabetes or like any autoimmune stuff. So it was completely a surprise.
Scott Benner 4:17
Like if you were in the hospital and a nurse was like, hey, this insulin if you give yourself too much of it, you could have a seizure and die. You think you would have told your mom to fly there right away? I have like a mom, I just found out. I'm not an adult. I'm looking at this dumb boy that I'm dating and I don't think he can handle this.
Emma 4:37
Yeah, no, so true. And they didn't even really tell me anything in the hospital like, they, they were they were like, Okay, you take six units of this when you eat and then you take 12 of this like every night, and then like maybe it'll be fine. And I was like, oh, okay, I guess I'll do that.
Scott Benner 4:58
Yeah, it's So, how long are you in the hospital for?
Emma 5:02
I was in the hospital for three days. Okay. Yeah, I was like emailing all my professors. Sorry, come to class and they weren't most of them are really understanding and very kind.
Scott Benner 5:15
So, or any of them not
Emma 5:19
know because because I'm so I'm at school for music so all my classes were really small and I knew most of my professors like pretty personally. Sure. So they were they were very understanding that
Scott Benner 5:31
makes sense. Okay, so you get back to school, and it's just back to the schedule. So do you learn diabetes while you're going to class or you do take a couple days off? When you have diabetes and use insulin, low blood sugar can happen when you don't expect it. G Bo Capo pen is a ready to use glucagon option that can treat very low blood sugar in adults and kids with diabetes. ages two and above. Find out more go to G voc glucagon.com. Forward slash juicebox G voc shouldn't be used in patients with pheochromocytoma or insulinoma visit G voc glucagon.com/risk.
Emma 6:13
No know I just went right back to school. I did. Yeah, there was I think like two classes specifically that were mostly lecture based. It was music history. And then I was doing a music for special learners class that were all lectures and I just like completely tuned out. I like was reading blogs. I was reading like academic journals about type one. And and yeah, I was not paying attention at all.
Scott Benner 6:42
Well, it's overwhelming, right? Like you're completely by yourself. And there's this thing. It's lifelong. And you don't have a lot of contexts where but you were very interested to learn more. You didn't just go with the well, this is what they said. And this is what I need to know you. You tried to figure out more? For
Emma 6:56
sure. For sure. Yeah. And like why would I want to learn about like vogner being anti semitic when I could learn something that could save my life? You know what I mean? Was he Yeah. Oh, yeah. All right.
Scott Benner 7:09
Well, that also seems like something you could learn in four seconds. Like you told me now and I'll never forget that. I'd be like, Okay. Does it hurt you in school? Are you are you able to kind of keep up at the same time?
Emma 7:23
My GPA dropped a little bit. I think that semester, I was sitting at like, a, like a 3.8. And I think that specific semester, it was like, 3.4. No,
Scott Benner 7:34
I think I think that'll be okay. But yeah,
Emma 7:37
no, I'm good. I graduated got my degree. So
Scott Benner 7:40
you got your degree in music. But are you uh, are you teaching music? Yeah,
Emma 7:44
so my degrees in music education. Oh, wow.
Scott Benner 7:48
Little kids are who you teaching.
Emma 7:50
So I'm certified K through 12. But I think I want to teach elementary music. I just finished my internship, which is for education majors. The last semester of your four years in college is your student teaching. So you're not in school and in college at all, but you're in school is teaching like with a mentor, teacher? And stuff?
Scott Benner 8:14
Nice. Do you play instruments?
Emma 8:16
I'm a vocalist.
Scott Benner 8:18
Nice. So how do you? So I'm trying to think back to when I was in school? So like chorus class, I remember that. Is that going to be your vibe, you're going to teach kids to sing and things like that?
Emma 8:31
Yeah, I so I taught for my placement, I split placement. So I was in a secondary school, teaching sixth through 12th grade choir for half of the semester, which I loved. And then for the other half, I was teaching general music, second through fifth grade. And I really love both I coming into it. I thought that I was just elementary because like, my mind kind of works that way. And my mom is also a music educator. She teaches a little kids too. But I really love teaching choir. I think that wherever I end up I would also want to do either like after school choir, or like a community choir somewhere. But yeah,
Scott Benner 9:12
I want to give you a piece of advice based on an experience I had as a child. Okay, don't let your skirt get stuck in your leggings before you go up on stage to run the like thing when all the parents come. Okay, cool. I watched that happen girl lady. She didn't seem she was embarrassed. She was very very No, that's terrible. Yeah, that seems bad. Yeah, don't do that. I think you're gonna be fine after that. Okay. Okay, so you've only got diabetes now for like a year. So do they give you technology at the hospital? Do you learn about technology? Are you still NDI? What is happening with all that?
Emma 9:46
So I was MDI for the first like three months. And I had first it was like, long acting pen short acting pen. Well No, it was always that, but I got the ink pen about like, a week after I got out of hospital, which was really awesome. And I was on the ink pen for like three months. Diagnosis, my agency was 11.9. And then after the first three months on the ink pen, I dropped it to 6.5. Which was great. Yeah,
Scott Benner 10:23
no kidding. Are you very Yeah.
Emma 10:27
No, not at all. Actually, I like walked to school and stuff. But no, it was very honest.
Scott Benner 10:34
She like No, no, I am not an active person. What would you consider your kind of fueling plan? Like how did you eat prior to diabetes?
Emma 10:45
My, my boyfriend looks a lot for me. And he's Cuban. So he would make a lot of like Cuban food. And at the time, he was working in a restaurant. So he was also learning other stuff, too. But I would just eat whatever he would make for me, which was, yeah, but right now Well, after after diagnosis, I was getting all this information from like, the hospital and things is like, you have to do this like half this like plate diagram thing, where half of it is, is vegetables. And the other half is like, are quarters protein and carbs, whatever, which is more of a type two thing, but that's what they told me. So I kind of just like ran with that. And my boyfriend I started like meal prepping, which really, I think was a was a key factor in bringing my agency down. Like, because having having those consistent meals that I like, could learn what to Bolus for, like, throughout the week. And just every time it was easier, because like, I knew what to expect. That made it a lot easier.
Scott Benner 11:50
You know, I joked about this boy earlier, but it sounds like he was pretty invested in helping you
Emma 11:55
know, he's, he's, he's the best. And he, like, out of everyone in my life, even really, my parents like he gave to you, he's taking the most time to like, learn about type one. And like, he knows what most of my alarms mean. He knows what to do if anything happens. And he like cooks for me. And he learned how to carb cow, like, in a few weeks and was helpful in that way too. He like he learned how to tell me like when to Pre-Bolus and stuff because since he was cooking, he would be the one that would know when the food would be ready in 20 minutes. So you'd be like, Okay, I'm you need to Bolus now. Because you learned about Pre-Bolus thing and things like that. So that's really nice, amazing. Yeah,
Scott Benner 12:36
he deserves a long leash. In case he messes up. You know what I mean? Because eventually, it's going to screw something up. So just, you know, remember this part that he did learn about Pre-Bolus thing? So Oh, wow, that's really kind of that's wonderful. Especially because you're by yourself. I mean, there's nobody else there. How much do you allow friends and into this new world?
Emma 13:02
I kind of let them decide. I mean, like my roommate in college, she, she was like on my Dexcom. Obviously, she's learned less about it. But she kind of knows the ropes. I think I saw I do but okay, but if my friends were like, can I be on your Dexcom? I'll be like, yes. And I'll send them an invite, because I just I think that that's super cute for them to know how I'm doing. And I have, this is gonna sound so like young, but I have a private Snapchat story that's called diabetes diaries. And that's what I like, post on all the updates of like, and then the first few months it was like, I'm low or like, I'm high or like, this is me putting on my Dexcom or my Omnipod when I got that. Yeah, some of my friends are more invested than others. But the people I met story are the people that have like shown interest in learning about diabetes, which I think is really awesome.
Scott Benner 14:04
Can you tell me a little bit about wanting to share it that way? Like, what's the what's the reason it makes you like me? You don't I mean? Like, what makes you start doing that? What did you get from it or not get from it?
Emma 14:17
I think I don't know I because I'm not really someone who like puts everything on social media either. But like when I was diagnosed, I knew absolutely nothing about type one, even though I like I knew people. I had friends in high school who had type one, but they never really talked about it. So I didn't know anything. And I just there's so many like misconceptions and and stereotypes and like, just like things that people don't know so so. I don't know I like to advocate for people with type one.
Scott Benner 14:53
It feels it felt important then to help other people understand the reality of what had happened deal? Yeah. Okay. Yeah. Do you think you did that? Do you think you reach people and, and change their opinions or educated them?
Emma 15:08
I think so. I think so I think, but it really it's, it's about, like how much you as an individual wants to receive the information, you know, because you can just like, swipe on the story and skip it. You know, it's, it's up to the individual, but I do have great friends who, who have been invested and learning, which is great.
Scott Benner 15:31
Yeah, of course. No, I mean, you're just putting it out there. It's, it's up to other people to pick it up or not. But I'm just wondering if you actually saw people responding. That was beyond like, Oh, I'm sorry. Like if they if they got interested, like, if you really felt like you left them with something? No,
Emma 15:46
I think I did. Like when I, oh, whenever I get my new a one sees, oh, like posted on there. And more often than not like, probably five people will be like, well swipe up and respond and be like, yeah.
Scott Benner 16:00
That's really great. That's excellent. Is it something you kept up with? Or did they die off after a bit?
Emma 16:04
No, I still post on that I posted today. I was like, gonna be a guest on my favorite diabetes podcast. So good vibes. And everyone's like, yeah.
Scott Benner 16:15
Are you on a different podcast after we record this?
Emma 16:17
Oh, no.
Scott Benner 16:20
I'm just kidding. I was trying to be humble and funny. At the same time, it didn't work. I apologize. Okay, so you said you were doing a lot of reading online? Is that where you found out about the podcast? No.
Emma 16:32
So I found out about it, really in the hospital. But I didn't start listening until until later. But I saw I in the hospital, I was like, doing crazy Googling, just like googling every question that popped into my head as you do. And at the time, I was 20. And was going to turn 21 in like a month. And so I was like, like, what's the deal with drinking and like alcohol? Because obviously, that is a factor, but I don't know what that is. And every like, Article I would find on Google was like, don't drink, like maybe like one, but like, it's not safe. So like, just don't. And I was like, I I'm in college. Like I'm about turn 21 Like, that's not gonna be real life for me.
Scott Benner 17:24
I'm sorry. That's an incorrect answer. Yeah, I was gonna add, I was funny. You said I looked into questions that I thought of, and I thought, Oh, I actually wrote down in front of me, like, ask her some of the questions that she asked. And you were like drinking, were there other ones besides drinking? Or was that really the main focus?
See, Emma, that was funny because you come off. So like, you come off so nicely, like very, like, mature and like everything. That's like, I wonder what she asked about. And then when you said that, I was like, oh, okay, that checks out. So did you figure out how to drink?
Emma 18:01
Yeah, so Okay, so after that, I was like, This can't be real. I know that people will type one drink. So I joined a Facebook group, which was not yours. I will tell you that it was not yours. It was a different one. And I made a post and I was like, hey, like, I just got diagnosed, sitting in the hospital, about turning 21 Like, what to do with drinking any like advice, or like, tips and tricks would be welcome. And I got like, like, probably, like, just dozens of comments and ranging from like, No, I don't drink or like, Yeah, I'll have a beer. Or like a wine works for me. seltzers whatever. And then people were like, Don't Bolus because you'll go high but then you'll come crashing down. Things like that. Other people were like, no, just smoke weed like don't mess with alcohol. People are like
Scott Benner 18:51
skip vodka go right to morphine.
Emma 18:56
Yeah, so like plenty of times of advice. And then one of them was like, listen to this episode of his podcast and it was a link to the one of your after dark episodes about
Scott Benner 19:07
alcohol. Oh, sure. Yeah, I remember doing that one. Yeah,
Emma 19:11
and so I didn't listen in the hospital because I was overwhelmed and sleeping a lot but about like probably a week after I got out I listened to that episode. And then I just like couldn't get enough I just kept listening and listening and it was truly information that saved my life because like it's not information that you can get like readily anywhere because it's like real from like real people who Yeah, who you know
Scott Benner 19:37
you don't you don't think one of the big pharma companies is gonna do a big blog posts on how to get loaded while you have type one diabetes.
Emma 19:45
But probably not
Scott Benner 19:47
that person in that episode now, by the way is a is a mommy she like has a baby. Cool. That's great. Yeah, it's been a while now. Okay, so I so Uncle Scott taught you how to drink with your insulin that and that should be on my tombstone, don't you think I wonder how many people but that's just that's, that's terrific. And you did get to it quickly, like you said, Oh, I didn't do it right away in the hospital because I was tired. But a week or so later is, I think an indication of how much you wanted to drink. Am I right?
Emma 20:21
I mean, the time clock was ticking. There was like, a less than probably three weeks that I had to figure it out.
Scott Benner 20:27
Mom got important things I gotta figure out over here. I got number five on my list. Where does this insulin come from? Number two is how do I get drunk? That's excellent. Exactly. You have any kind of depression or sadness after you were diagnosed? No,
Emma 20:46
no, I had a good support system, which I think was really key. There was a lot of like, frustration of just like, it's a lot of like trying things and then then not working and then doing something differently next time. And I was like, learning things so quickly that it was like information overload. But But no, like, it didn't really affect it, honestly, honestly. Because for like three months about I my blood sugar's were like crazy high. And I just didn't know it. So I was like, super tired all the time. Obviously, like, you know, high. Being high is not fun. But I didn't know what I was just like, Oh, I'm burnt out from school, which is why I'm napping two times a day. And like, I'm irritable all the time. And whatever. So once I got my blood sugar's in range, like it was, honestly, you
Scott Benner 21:40
really I felt better. Yeah, you were relieved to have a reason for why you felt that way. Yeah, and none of you don't have any of those like your brain chemistry doesn't work. Like why me this isn't fair. I'm in college. I'm so young. None of that comes into your head. Oh,
Emma 21:55
I have I'm like once a month, I would say I have like a diabetes breakdown is what I call them. Like it just but you have to do that. Like you have to just get it out somehow. But most for the most part, I'm like, I'm doing okay. And I was doing okay,
Scott Benner 22:11
strong contender for the title of your episode. By the way. What is it was that diabetes breakdown? Yeah, it's got double entendre means different things gonna be fantastic. Okay, so I get that. Like, where does the breakdown go to? Like D throw something? Is it like loud cursing, screaming into a pillow crying? How does it happen? Just
Emma 22:32
like, just like, heavy crying? Like sobbing. Sobbing Yeah.
Scott Benner 22:38
I love the sob just. Yeah, it really is like, you feel better afterwards, don't
Emma 22:44
you? Truly? Yeah, yeah. And I'm like a crier in general. So this on top of that was it was it was bound to happen that way. I had one at school, which was not fun at all.
Scott Benner 22:55
Like in, in class or just in your dorm. Like
Emma 22:59
in like, the elementary school I was teaching at
Scott Benner 23:03
Oh, while you were teaching. Okay, we'll get back to that. Did you cry during the recent Guardians of the Galaxy film Guardians of the Galaxy? See? No, yeah. No spoilers. I'm not gonna spoil it for you. But I cried. And, and a little bit, not like bawling, but like tears, and you're watching a movie that is so clearly not reality. Or you cry during something like that. You say to yourself, yeah, I'm a person that can cry. Yes. That's really, that's a thing I can do. Okay, you should get out to see it, though. It was good. Okay, all right. Okay, so you get out of school, and you have a job, and you kind of fall apart at work. What led? Yeah.
Emma 23:45
So what happened? was, um, so my teacher, what my teachers, like, my mentor teachers at the schools knew I had diabetes. And like, I didn't know much, obviously. So like, when they would hear alarms, you'd be like, are you good? I'd be like, Yeah, fine. But there was one day where my teacher it was a Wednesday, so she had planning all day planning periods, no real classes with kids, which was fortunate for me because this happened. But she was saying yesterday, the day before that, that she was going to take me out to lunch or whatever. And I forgot about that. And I brought my lunch. And then 20 minutes before the time that we usually eat i Pre-Bolus Obviously, so that I could eat, but then like 10 minutes after that she like came in and was like, Do you want to leave for lunch and like overlong and I was like, Oh, yeah. And I didn't want to be like a bother. So I was like, Yeah, sure. And I was like, okay, maybe I can just like have something to eat now. So I want to have to have as many carbs and then it'll balance out and then I'll just like Bolus when I get there. And then, like the place that we were going to pick up food was like Closed. And then we like she, like didn't really do anything about it. And we just like moved on to like lesson planning. And I was like, oh,
Scott Benner 25:08
oh, she's like, bummer. This is closed. Let's go back to work. Yeah,
Emma 25:12
like, we'll just figure it out after like, I explained this lesson plan to you.
Scott Benner 25:16
And I was like, I'm just gonna be flipping around like a fish by then.
Emma 25:20
Exactly. And so then I was like, I just, I'll be right back. And I was like, okay, so I like, go to the vending machine in the lounge. And I was like, I'll just get like a soda, and then I'll just sleep on it, and it'll be okay. And then the vending machine was cash only, which that is so stupid, because cash doesn't exist anymore. That's not real money. Like, why would that be a thing? So I was like, freaking out.
Scott Benner 25:50
I was like, crying glass.
Emma 25:53
No, no, no. And there wasn't even like soda. It was like Gatorade. And I was like,
Scott Benner 25:58
what I want you're gonna get all this trouble to get into this machine to get something I don't even want. Oh, well, it
Emma 26:07
was horrible. It's horrible. And so then I like texted her and I was like, I just listen, I just need to eat lunch. And she was like, Okay, I understand. Like, let's let's do it. Let's eat. And it was just so frustrating. And then I went Hi, which was so annoying. It was so annoying with all that going on. And yeah, probably
Scott Benner 26:25
got hit pretty hard with some adrenaline when you realize there was no food. Yeah. So after all that, do you just melt down?
Emma 26:36
Yeah, yeah, like, mascara running down my cheeks. It was that. And we have lunch with the art teacher too. Who was like, also crazy in a good way. And I just got to like vent to them, which was, which was good.
Scott Benner 26:52
We all are, by the way, the art teachers. Yeah, for sure. Yeah, just like hippies. And, like, that kind of vibe. I remember my art teacher. I remember my art teacher when I was in middle school. Had a, like a cow's skull. And it had like real real cow skull that had like a bullet hole in it. So you can see that the cow was put down for meat. And then anytime someone looked at it, she would tell you about being a vegetarian. Like it was. Oh my God, it was her. It was her starter for like she wanted to bang the drum for not eating meat. And so that thing there I think I always got the vibe was that was supposed to horrify you. And then she I think she thought she was going to create a legion of vegetarians. No, no, but an artists art teacher in high school. She's like, she's so nice and gentle. And like, that's how she talks about her like she's gentle. And it's just interesting. So these ladies were I'm sorry, they were ladies. Yeah, yeah, these ladies were supportive and understanding. They just listened. Did you feel supported?
Emma 28:05
Yeah, I did. Yeah. And then my, the art teachers stepdad also has type one who was she's close with her stepdad. And so she was like, she was like, Yeah, my stepdad like, he'll just be beeping all day. And because he's like, low all day is what she said. Like, and he just my mom, her mom and her are like, you'd have to eat a little something like every few hours and you'll be okay. But he's like waking up in the night because he's low. And so I try to like give her a little, like, usually lower Basal maybe, but those words don't mean anything to her. So I don't know. But they were very understanding.
Scott Benner 28:45
I have one more question about that moment. The the end when it's mascara and everything that's happening is that frustration, anger. Fear. What was motivating, your,
Emma 29:00
your feelings? Definitely. frustration and anger too. Because I get frustrated about like, like the situation. And then it's just like a broader anger of like, why is this happening in my life? Like, because there's no reason like my family doesn't have autoimmune stuff. So at
Scott Benner 29:21
all, we don't have celiac somewhere. Nothing.
Emma 29:24
No, which is so annoying. It's so annoying. baranda that was me.
Scott Benner 29:29
Yeah. Your diagnosis was it precipitated by a virus of any kind?
Emma 29:34
I think so. They never said that. But I got sick in December of my junior year. And then I like never really like it like took months for me for like the cough to go away. And then that kind of lines up with my agency to being so high. It was about three months after that, that I got diagnosed
Scott Benner 29:57
so you know what kind of illness it was? No, just like a cold. Okay, but you couldn't shake it? No. I'm sorry. Almost like your immune system was busy doing something else. Yeah, beating your pancreas.
Emma 30:13
Right. Yeah. Absolutely. So after after I got sick. That was when I started seeing the symptoms that I know now we're high blood sugars, like thirsty all the time. I was like, paying a lot like waking up in the night to go to the bathroom, and stuff. And what's super funny is that when all that was happening, I was so thirsty all the time, I was craving juice. So I would like whenever I'd go to like the store to get something or like the market at school, I would be like, Who wants us to I want because I was a self proclaimed juice girl, which is hilarious because it was just dragging my blood sugar was so high. I know it. And I would feel like garbage after I like was dreaming. I was juice. But
Scott Benner 30:58
were people calling you juice girl, or was this just something you had attached yourself?
Emma 31:03
No, I was just like, I was just like, Oh, I'm gonna use Chrome. No good juice.
Scott Benner 31:09
I don't think juice girl beats out diabetes breakdown, but I'll jot it down. Don't Don't worry. I'll jot it down. Don't use girl. That's the worst superhero. Yeah. to do with that, like score people in the face with a little straw. Maybe you're not gonna stop much crime, though. What? If? You know, I don't know if you've done this, but I'm going to ask have you given any consideration to how this impacted you with the age you were diagnosed versus how it would have been if you were younger? When it happened?
Emma 31:43
I do. Yeah. I so I think that because because my parents are wonderful. Like, they're really wonderful people. And they've always been invested in my growth and my school and everything like that. And so I think that if I was diagnosed younger, they would have had a huge part to play in my management and stuff. And my dad is someone who is super, super smart. And I think that he would get a handle on it really quickly. Sort of like you his name was also Scott, which I think is is it really? Because yeah, because he's like my dad, and then you're like my, like diabetes that
Scott Benner 32:25
oh, so nice. But
Emma 32:29
so, so yeah, I think that they would have had a big part to play my management. But since I was away from home when it happened and sort of like not really relying on them, like they haven't learned that much about it. And they like visited me for the first time, like, three months after it happened. And they were like, I was like doing injections. And they were just kind of like staring which like, be like, obviously you would be like curious about it. And whenever we're together they like will ask questions and things but they I don't know. They're so I story. It was the fourth of July this summer after I was diagnosed. And they were basically like, okay, just tell us like what you need us to do. I was like, okay, like, just tell me like 20 minutes before we'll eat. We're eating lunch and I'll Pre-Bolus They were like, okay, boiler alert. That did not happen. They were like, Okay, grab a play. And I was like, oh, okay, so I
Scott Benner 33:32
want you to do one thing.
Emma 33:36
Right? And then they realized, and they're like, Oh, we can wait. And I was like, okay, whatever. So I was like, I was like trying to like carb count. I was looking at like, the packages that were in the trash of like the hamburger buns and things like that. And, like trying to count up all these carbs. And then my mom was like, my mom was like Emma like, hurry. Like, why aren't you doing it? So we can like eat? You lady. I'd be like, you asked me what you can do. I know. Like, oh, so that was also another breakdown that I had. And I like had to like leave like went to the bedroom. And I was just like sobbing. And wait, hold on. Can you hear me my I think my iPad just died.
Scott Benner 34:23
I mean, I can but if your air pod died, we're in trouble.
Emma 34:27
Now you're good once so like we're still alive. In the case. Yeah. Yeah. Okay. So so I was like, sobbing and she like, came to see me and she was like, I'm sorry. Like, do you like tell me what's going on? And I was like, you're just like, don't know anything. I don't know why you don't know anything like like, why haven't you like, done your research? Like, you should be like, I have type one. Like you should know these things. And she was like, Well, it's hard because like you're not around to like, ask questions and stuff. And I remember Like I was like, read a book. Like I do I do get it because because I'm also someone that would probably be in the same boat as them. I
Scott Benner 35:12
don't know about that you you got right to it when you were diagnosed?
Emma 35:15
Yeah, but But I mean, they like I can't stress enough like how I
Scott Benner 35:21
love why No, they're lovely. You love them. We're just telling a story, I hear you. But pick through this for a second because you hit on something that crushes me as a parent. Two things, actually, you teed me up to be very upset. So there's two things that I struggle with a lot. And the first thing is, I always wonder, just on a very human level, is there somewhere in the back of their mind that your parents are just relieved that you're an adult when this happened to you? And that they're just like, me, like, I, I'm so glad I don't have to be involved in this. Or are they relieved, but sad that they're relieved? Because it's hard to let go of it. Like Arden texted us last night, like, I can't, I can't stress enough, my wife and I had a really nice day yesterday. And we get in bed. And we're actually talking about how nicely the day went. This is the part where if we were younger, we would have sex, but instead, Emma were older. So we chat about how nice the day is, right? And we're talking about it. And Arden sends a text that she's having trouble with something. And you my first thought is, I am so sorry. And upset that she's not here so I can help her. And then there is a little party that's like, I guess she's gonna have to take care of it on her own. And that's good for her too. And maybe that'll alleviate the guilt, I feel about not being able to be there. And so like, that's a whole thing that happens with your kids. And you were probably your parents were probably like, like, you seem like a lovely person. So when you're like this age, and almost on college, they're probably like, huh, Emma, we got her right. Like, she's gonna go get a job and teach kids how to sing. And she's lovely. And she met that boy and he cooks for and they're probably like, pretty comfortable. You know what I mean? And then all of a sudden, you have a need that mimics a childhood need. And they're not there. They feel disconnected. They think, oh, okay, well, she's gonna have to get it. It's gonna be good for her to figure it out. And then they let go of it. I imagined but then they see you in person. And you say they're looking at you. I'm gonna give you another perspective on that moment, when they said, Can we help? And you said, let me know. 20 minutes before dinner. I'm gonna guess they were heartbroken watching you give yourself your insulin. Yeah, yeah, I'm gonna guess they were mortified, heartbroken, felt lost and useless and didn't know what to do. Now, granted, they could have got off on the right foot by setting a timer, or something. But, but um, but but that's my guess is that they probably felt useless in that moment. And that's, that's not an easy thing to feel as a parent. So that's my side of it. But you're in the room yelling at her that she should have done something. Go ahead. I'm sorry. From there.
Emma 38:21
No, I mean, that was basically it. I mean, yeah, let it go. Ya know, and from then on, like, they got good about about giving me a heads up about when they'll be ready. Because I'm home. My mom cooks and so
Scott Benner 38:36
she don't wanna get she want to get. She's like, Oh, I see where this is going. This girl's aggressive. Do you think you're a different person now than you were when you left for college?
Emma 38:47
Oh, for sure. For sure. Yeah, I've done a lot of growing. And in the last four years, definitely. That's hard
Scott Benner 38:54
to as a parent to, for you to come back and not be the person you were when you left? Yeah, you know, and there's so much that I find the unknown to be the most difficult part. Like right now. My kids are somewhere doing something. I have a vague idea of where they are and a vague idea of what they're doing. But they're having these experiences. And these moments, seemingly, like hourly that I'm not there for, and it's very upsetting. I don't I don't know another way to put it like i I wish there was a way for you, Emma to have all the privacy you wanted and for your mom to be able to watch your life on closed circuit television. Because she feels like you're becoming a person that she doesn't know. And it's it's a very, very upsetting I don't even know what better way to say it. It's it's incredible. Anyway,
Emma 39:53
I mean, I don't I don't I would have talked to her about it, but I don't I don't know about that. I mean, I've been in like middle school and high school. Have we like fought all the time? Because we're so similar. But now like, we're really good friends like I texture. Probably every other day we call the time. And we're a lot closer than we were, then.
Scott Benner 40:14
Well, you, you you feel close to her because you're an adult now. But she felt closer to you when you were seven? Probably.
Emma 40:22
Yeah, no. And yesterday was Mother's Day. And so I asked her, like, what was your favorite age that we weren't like to be a mom? And she was like, yeah, probably elementary school, because like, y'all would come home from school, and we would my brother and I have a brother who's two years older than me. And y'all would come home from school, and we would just like cuddle on the couch. And y'all would tell me about your day. And I would I would ask you like, do you think you'll ever grow out of it out of this? No, we're like, no, never will always do this. So
Scott Benner 40:53
every kid thinks they're gonna live across the street, when they grow up. Yeah, like, I'll just I'll go to the place across the street and live there. So we can be near each other. Yeah, my kids would come home, and we'd sit in the kitchen and talk about the day. And you know, spend a little time and then they'd eat something and you'd keep talking. And it's one of my favorite times to, but not that this isn't a good thing, the part where you're an adult. And by the way, if it wasn't for death, Emma, I would be down with this part. Except I'm getting old. Do you know what I mean? Yeah, so I don't want to, I don't know. It just feels like, it feels like things happen in big sections. And then at some part, point, one of my kids is gonna get married or something like that. And then the next thing, you know, like, I'm going to be the old guy at the wedding. And then they'll make a baby maybe. And a few years later, I'll be the guy that comes around and sees the baby sometimes. And like, it just feels like you're like moments in your life away. And when they're, when they're little. Like when you were little. It feels like you have forever. I know, these are cliche things to say, but they are absolutely true. So anyway, my point is they really did let you down by not telling you about when dinner was coming. And these people are bastards, and they really have to try harder.
Emma 42:10
they text me every time that I'm low. Whenever they get a LOW Alert. They they're like
Scott Benner 42:15
the first people to text. How do you handle that? Are you good with that? Yeah, well,
Emma 42:19
normally I I have it under control, because I usually like see loads coming before they happen because I'm like, just constantly checking my blood sugar is kind of crazy. And so I'll just don't really take stock and be like, yeah, treating it or like just changed my sensor. So it's like, fake you know, those things.
Scott Benner 42:38
If I scroll back through my text with Arden for the last week, what you would see is, do you think it's okay, if I park here with photos of where she parked? A soap she wants me to send to her which I've taken care of. And then just a string of like, stop. I know. Leave me alone stop. Oh, the table ripped off my arm the pod there was a no and she just Oh God didn't had this thing that happened to her at school. That it just it's a cascading event that just kept cascading. And it was just she was in class and turned around and never and I really mean this. I'm genuinely saying this. Arden has been using a nominee pod since she was four. She's almost 19 This is the only one I've ever remembered getting knocked off. But she gets she gets knocked off in class. She's sick. I'm gonna be back soon she goes back home ends up not feeling well and being tired and then falling asleep before she replaced her pump. So luckily, she was having luckily she was having like a low before that. So the low Helder for hours that we didn't know like so we're looking at her blood sugar blood sugar is like rock solid. And by the way on Nightscout everything looks okay because she didn't disk she didn't disconnect the pods. The pod was still running. It was in her purse pumping insulin when she needed when it was trying to pump insulin right. But she's asleep the whole time. And then I'm texting her I'm like Arden like something's wrong. Your blood sugar is going up. Bla bla bla, she doesn't wake up right away. She finally gets up. And then I'm like, I don't understand. Like I see a Bolus thing but your blood sugar is not acting like it. And then finally, finally she tells me what happened. So the the pods like in her purse bolusing. And her blood she's asleep doesn't feel well in her blood sugar shooting up. So then I'm like, I'm like Arlen. Listen, you know, we have to test here because you you know, we don't want you to go into decay. You haven't had insulin for hours, like you know, this whole thing. And she's like, I'm not DKA and I'm like, I don't think that's how that works that you just get to decide you're not. And she's like I already put a new pot on. I made a big Bolus. It's gonna be fine. It's gonna start Don't wind down. And I'm like, All right. And she really did handle it. Like she took care. She took care of it. But it's a good example of like a whole bunch of like events like just a confluence of events that led to a moment where, like, if I wasn't watching her blood sugar and trying to wake her up, I don't know how long she would have slept. Maybe she would have woken up and DK is very scary. You should not have children, Emma, it is a thing. It's very upsetting. Very, very upsetting, then you love them. And then stuff like this happens. And it just takes years off your life. Yes, terrible. Yeah, yeah, don't do it.
Emma 45:40
My biggest fear is having a kid because I'm definitely gonna have kids. But my biggest fear is one of them. Getting type one. Yeah,
Scott Benner 45:48
I know that could happen. Yeah, before you were like that can happen, which by the way it could have. But now you're like that. Now you're actually worried about
Emma 45:57
it? Yeah, no, I had a breakdown about that to Europe,
Scott Benner 46:00
in Europe. How'd you get to go to Europe? First of all fancy? What do you do?
Emma 46:04
I've been to Europe a few times. But this particular time was with the choir that I sing in school, we did a European tour for like two weeks, which was awesome.
Scott Benner 46:18
That's amazing. I knew but you had a breakdown in Europe, while you're singing about the fact that you might have a baby one day and it maybe could have diabetes.
Emma 46:29
Not what I was singing, but it was we. So I don't know, school trips are weird in college, because you're all adults. So you can do whatever you want. So we had tons of free time. And at night, especially. And so people would you know, go out obviously. So we were at this bar, and in in London, and I asked for a Diet Coke and rum, obviously. And then I started drinking and then my blood sugar was like, spiking like nobody's business. And I was like, this is not diet. And so that kind of just like set me off. Because it was just annoying. And so I was like crying outside of the bar on the street and on the phone with my boyfriend who was in Miami. And just like just having a breakdown.
Scott Benner 47:22
Because because the bartender gave you regular soda.
Emma 47:25
Yeah, yeah. Which like what is that about?
Scott Benner 47:28
This lead to? What about the part where you're upset about the kid? Maybe the future?
Emma 47:33
It just whatever. I like have these breakdowns? Like once a month, it just kind of like spirals you know? Okay.
Scott Benner 47:40
Have you tried, I just recorded an episode, it's coming out this week. About the 54321 method for like counting. It's Erica did a lot of the talking during this episode. So I want to make sure that I'm gonna get it right. So
Emma 47:58
like five things you see, and then like four things you can touch and like,
Scott Benner 48:03
yes, grounding techniques. Have you ever tried that? Yeah. No.
Emma 48:09
I kind of I don't know. I think I think the breakdowns are like necessary. You know what? something
Scott Benner 48:17
worse? So you kind of want to have the outlet. Is that right? Yeah. Yeah, that makes sense. Yeah, I think first when you break down. You seem so nice. Do you do curse though, right? Oh, yeah. Yeah, I love cursing. And I love doing it when I'm upset too. Yeah. It really is the best. Alright. So you do pretty well, taking care of yourself. Obviously, your agencies are sound like they're great. And you're doing well. Do you struggle with anything? Like
Emma 48:49
the diabetes? Why? Yeah. Well, okay, so my, I've had type one for a year. And since I was diagnosed about like, like six months after I was diagnosed, I got sick for the first time, which was horrible. By the way, I would not recommend because it's so much harder than when you don't have to have one. Yeah, you're talking
Scott Benner 49:14
about real people sick, like you got the flu or something like that.
Emma 49:17
It was just the cold but it was horrible. It was like the worst ever. I felt like I was dying because I was feeling horrible. Because I was sick. But then my blood sugar's were, like high all the time, because my resistance was way up. So that would just make me feel worse. But after that, my insulin needs in general were like a lot higher. And so I had to kind of like figure out my new ratios. And then I was on a pump at that point. So it was, like, easy, just like, you know, do the math and put it in the poem. But when with with those bigger boluses because I was using so much more insulin Sometimes, like my pump couldn't handle it and like absorption wise, like it wasn't really working. So like my pump would leak, and then I would have to like, change it early. And then I didn't know how much insulin I really got, because it leaked. And I was doing a lot of like, Phantom carbs after my meals, like, just because I was high and I wanted to get it down, I would say I was eating like 20 carbs. And then even though I wasn't in my endo has gotten one thing about that, because she didn't like to do that. But, um, I don't know, we're finding ways to, to stop doing that. So Gotcha. That's been that's been a challenge. Like just the insulin needs always going up. Because we at my last appointment, we just did my C peptides, which is a measure of, of your, like, the functionality of your pancreas. And mine is like at point eight, which is just like in the frame of normal, like, very low, but, but in the normal range. And so mindful needs are only going to go up from here.
Scott Benner 51:05
Whoa, you are having like a lot of experience. Like, like a latent, like a slow onset of your actual, like, full need for insulin. Yeah, yeah, that's interesting. Oh, okay. All right. Yeah. So you're adjusting, having to adjust more and more and more as time goes on. pretty consistently, too, right? Yeah, like a slow drift away.
Emma 51:30
Yeah. And so I've just started, because my doctor after all this stuff, prescribed me ozempic, which is for type two, but it makes you more sensitive to insulin. And so I've been on that for like a week and it's like cut my insulin needs and like half
Scott Benner 51:49
crazy use on I was Empik for a year. Will you come back on and talk about it with me? Oh, yeah, for sure. You I'm on week govi. It's the same Joe. Oh, cool. It was empty. Can we go v are the same molecule. They get different names. So they can be. They can be used for different things. So I'm prescribed we go V for weight loss. You would be prescribed ozempic for type two diabetes, weight loss. How are you getting it for type one? What's your diagnosis? That leads to you getting it?
Emma 52:25
I guess
Scott Benner 52:26
like high insulin resistance? Yeah. And your insurance company paid for it? Yeah. Oh, well, well, well, that's good news. Are you on your own insurance but that school? No, it's my dad. I was gonna say are you on? Like somebody who's had like, been making money for 35 years insurance? Yeah, those insurances are usually better. Yeah. Okay. Interesting. How you can stay on your dad's insurance for a few more years. So you're 26 Yeah. Scott's insurance? Yeah. I don't love my name, by the way.
Emma 53:03
Well, my dad's name. That's first name is actually Christopher. And his middle name is Scott. So if you chose Scott,
Scott Benner 53:09
really? Yeah, choose Scott or Christopher along. I don't know. I don't use my name. Like my name doesn't get used often. Like nobody calls me Scott. Well, they call you nothing. Do people call you Emma? Like, is that how people get your attention?
Emma 53:28
Yeah. Or Miss gladden?
Scott Benner 53:31
Do you want your last name in there? Or should I take that up? Yeah, that's fine. Okay. Yeah, I am. I don't nobody says my name. My mom once in a while, maybe. But yeah, don't I think dad probably called me stupid the other day. I don't think she was even kidding. It was very hurtful. I said you think I'm stupid? She goes sometimes. It's like, oh, God, really ruin my afternoon? Yeah. Yeah. Tell me a little bit. I mean, I'm remiss if I don't ask, right. Like you've hinted at it two or three times now. You like the podcast? I do. What do you what do you get from it?
Emma 54:15
Oh, gosh, I think just everything I've learned about diabetes has has been from the podcast as many like journals and books and things that I read when I was first diagnosed, like this was the most helpful information because it was so accessible and like I could just listen to it in the car or, or when I'm walking you know, and, and I don't know, I think that what you do is so, so valuable because it just helps so many people and and like I can't count how many people I've like recommended the podcast to whether they're like people with type one or like, family members that I've sent episodes to I just I think that it's it's so valuable. All right, you do.
Scott Benner 55:00
So I'm happy, very, very happy that you that you enjoy it and it's doing something for you. That's how it goes, like you just described how a podcast gets bigger. Yeah, cuz it really doesn't move without the listeners sharing it with other people. And then eventually it would die if they didn't do that. So it's very cool that you that it means enough to you and, and is valuable enough to the chair with somebody else. I appreciate that very much. So this is a management thing for you like you got management ideas from the podcast. Yeah,
Emma 55:33
well, and after dark episodes do or just listen to for fun, like the one about a stripper and like all like the ones about like, drug users and things like that. I just think those are so interesting. Just another, another take on this disease and how it affects, you know, people Yeah, I
Scott Benner 55:53
love. I love talking to people, and it doesn't matter what their story is really, like, I really enjoy hearing it. I interviewed a nine year old girl the other day. And I had such a good time it Wait, wait, do you like she sarcasm, she was too young for sarcasm. So like I was, I don't know, you're just gonna have to listen to it. It's, I It's such a fun time talking to her. But I just love hearing from people. And yeah, you know, their perspectives, their ideas, like even talking to you and seeing, you know, like, you're an interesting mix of people, right? Like, you're a serious person, you're thoughtful, you're smart, you took a lot of care to learn about your own health. And at the same time, you were like, I need to know how to drink. And like it's just, that's it's a, it's a good insight into the people are complex, and nothing's as simple as it seems even even with the the, the story you told about your parents, like is very honest. And I think it'll help people to understand that, you know, everybody's not going to just understand their diabetes right away. And it's, it's going to take some communication and work to build that, you know, like, we were able to build it with your boyfriend, because he's there. And, you know, if your parents were there, you'd build something with them, too. But it wouldn't be the same as what you have with your boyfriend. And everybody can kind of have a slightly different piece of this and bring something to the support network that you have. So very cool. That's wonderful. Is there things we haven't talked about yet that we should have? I want to I don't want to miss anything.
Emma 57:31
I don't know. I mean, I travel a lot. So I could, yeah, talk a little bit about that. But did you
Scott Benner 57:39
have to travel once when you were newly diagnosed? Or did you have time to pull it together before you started?
Emma 57:44
My first I took a trip to California in March after I was diagnosed, so about a month after I was diagnosed. And that was hard because I was still figuring things out. And I was also MDI, which is just less convenient than having a pump to Yeah, I also like I was staying at my at my roommates house with her family. And I actually left my insulin in the fridge, which was an issue. I've done that twice now, which is not great.
Scott Benner 58:16
abated your insulin at someone's home. Yeah,
Emma 58:19
it was an Airbnb. Well, no. So my roommates mom brought it to Miami the next time that she came down, which was great. But the other time I left it, it was an Airbnb, and I didn't get it back, which was
Scott Benner 58:33
great. They sold it on the black market.
Emma 58:35
I don't know, because it was it was at a hotel. But it was also an Airbnb. So the people that they had come clean wasn't through the hotel. So I like tried to call the hotel and they were like, Oh, we don't. That's not our cleaning. So like we don't know. And then I couldn't really contact the host anymore because of other things. And and
Scott Benner 58:56
Yeah, somebody wouldn't just walk upstairs and look for you. I guess not. People suck. Why would they not do that? Did you tell them like it's important? It's expensive. It's etc? Yeah, no, yeah. Yeah, we know we already sold it on eBay.
Emma 59:12
Right? Yeah.
Scott Benner 59:14
I once had a conversation with somebody about a lost the iPad. And they're like, yeah, like, we don't know what I'm like, you know, I can track the iPad. It's exactly where you are. Really? Yeah. They're like, No, let me know it is. Right there in the building. You're in you Sure. You don't have it now? Then. All of a sudden, I couldn't track it anymore. I was like, Oh, so you shut it off. No, my great. I said, Well, I hope you choke on the money that you get for selling my iPads. Go for yourself. But yeah, I got off the phone. But it Yeah, I don't know. Hopefully it wasn't that for you. But I'm, I'm cynical. I'm assuming. I'm assuming somebody saw it was like, Oh, my grandmother uses insulin to change, you know? Yeah. Anyway,
Emma 59:57
I mean, it's so expensive nowadays, but yeah, It's also just with traveling, keeping it at the right temperature and everything is really hard. And yeah. So
Scott Benner 1:00:07
how do you do that? How did you figure out how to do it?
Emma 1:00:09
Well, I keep it in a water bottle now. But when I went on this, this European tour with my choir, there was almost an incident because we had had flown to London, I think. And we got to the, to the airport. And then we had a bus that was there with this, like, British bus driver who was hilarious, but he like wanted nothing like did not want us to touch the bags going into the like, underneath the bus, because it was like Tetris, and he was like the best at it. So he did all the bags, and I was like stressing me out that he was yelling at people helping. So I just kind of sort of like, left my bags there and then went up to the bus. And then like, 30 minutes after we were on the bus, I realized that my insulin was in my carry on that was underneath the bus. That was probably not cool down there. Yeah. And I was like, oh my god, we have like, a week left of this trip and am I just gonna have spoiled insulin. So I freaked out to not break down, which was fortunate. But I like told the bus driver and we were like, on the way to Westminster Abbey. And he was like, okay, when we get there, we're like, open up underneath the bus and, and I take medications to them to be cold. And I totally understand. And he was really sweet about it. And then he there was like this little cooler compartment like on the bus that was for like waters that he would sell us and he was like, you can keep your insulin in here every day from now on. Like, don't worry about it, which was really kind I don't know, I just I find that with diabetes. Like you just you just find people who care everywhere. Which is wonderful. Yeah,
Scott Benner 1:01:51
I will tell you that we travel with Arden's insulin vials in a sort of like a, I don't know, like one of those stainless steel cups that keeps things cold for like a month. And yeah, you know, I put a little bit of ice in the bottom. And then usually the vials, we actually put the vials in like a plastic bag to keep them dry. And usually put like a little bit of a paper towel around them just to keep them like cushioned a little. And then they go the bag and everything goes in and then more ice on top. And then I find that can stay cold for days like that. I
Emma 1:02:27
think you've mentioned that before. And that's what I do now because I do do that. Oh,
Scott Benner 1:02:31
good, good, good. Plus, it's a little shock resistant. And it's small enough that if you can, like even when you've got a ton of bags, you can either put it somewhere, you know if it's or you can carry it with you, and you don't lose it. It's heavy enough. You know you have it with you. You don't I mean, like you don't lose track of it. Like there's a lot of good stuff. We're actually thinking of going on a impromptu trip pretty soon to a warm weather place.
Emma 1:02:55
So I think you're not going to tell me where is it Miami? No,
Scott Benner 1:02:59
but we'll probably fly over Miami getting to it. Oh, yeah, just my a couple of times in our life, we vacation in St. John, in the Virgin Islands. When my kids were little Arden's coming home from college. All of her friends are actually home from college. And they're overlapping exactly at the same time. And Kelly's like maybe, maybe all the girls would want to go like we could kind of split the cost a little bit and make it doable. So we're thinking, we're looking into that this week, maybe we might end up doing that. But yeah, it would be lovely actually, to see them all. Because they're older now. And it's weird. Like one of them came over last night when they got home from college to say hi, and just look at and you're like, God, you're like 19 Now it's ridiculous. You know, so So you're doing well traveling, counting on other people. Little bit. Little kindness, little thoughtfulness. I was interested that you. You got pressured when the stuff was going in the bus?
Emma 1:04:01
Yeah, I just get anxious about things like that. And so I forget things that I need. I think about other people too much. I'm like, what do you need? I need you feel okay, what's happening right now. So I use forget about myself,
Scott Benner 1:04:15
I would have been like, I don't care what you're saying my insolence in here. You're not touching that. But. But that's, that's okay, though. I mean, you worked it out. Right. And you did stand up like, once you once you had your wits about you were like, I have to do something about this. Yeah, you handle that. Well. Do you think you're gonna get married like soon or do you think you'll get married later?
Emma 1:04:34
Within the next like, three to five years, probably. I've been dating my boyfriend for three and a half years. And we're both music educators. So we're on like, the same path in life and, and I just I can't imagine doing life with anyone else. So it'll happen eventually. I just don't know.
Scott Benner 1:04:53
That's very nice. Good for you. Yeah, not too soon. Not too late. Right in the middle. Here. I like it. I got married too soon.
Emma 1:05:02
I know you're married when you were really young, my wife would say the same thing.
Scott Benner 1:05:07
She might have been saying it. While she was calling me stupid the other day. I don't know if it's worked out or not. I've only been married for 26 years, it could all still fall apart. No, maybe? Who knows? I'm just saying there's no way to know. You know, like I said to that nine year old girl when I was interviewing her the other day, I asked her, she was from Canada. So I did all my Canadian humor on one little kid who didn't understand that I was kidding. It's fantastic. You know, and I'm just like, I'm like, how do you get there? And she's like, in a car. I'm like, there are cars in Canada and shoes. Yes. And I'm like, Are there really are and it's because yesterday, I didn't think you had cars. And she goes, yeah, there's cars everywhere. I'm like, I said, you know, for sure there's cars in America. And she goes, Yeah, I'm like, Have you ever been here? She goes, No. And I said, Well, how do you know for sure there are cars here? And she goes, there are? And I said, Are you in a room right now? And she goes, yes. I said, is the door closed? And she goes, yes. I said, Look at the door. She looks at the door, and I go, is there a clown standing on the other side of that door? She goes, No. And I went, are you sure? No. And I'm like, Are you sure there are cars in America?
Emma 1:06:22
That's so funny. I love messing with kids. It's my favorite thing. That's why I love working with kids so much that there's so fun to mess with.
Scott Benner 1:06:28
I thought she needed a critical thinking exercise. I was like, I told him like, there's probably not a cloud on the other side of the door. But you don't know for certain. And so she was like, Yeah, I guess not. I was like, right on. So are there cars in America? And she goes, I think so. But I'm not sure. And I'm like, good for you. Excellent. Now we're learning how to fish. And I was amusing myself, because, as you may imagine, there's not a ton to talk to a nine year old about.
Emma 1:06:57
Right? Yeah. Well, yeah. When my kids, my kids would ask them, like, how old are you? I'm like, Yeah, I'm 16 or four. They're like, No, you're not like, Well, how do you know? Maybe I am? Like, I'm like, Yeah, I'm six foot four. And they're like, Okay, I don't really know
Scott Benner 1:07:18
what to do with it. They're just young enough to like, not know what to do and not just call you on it, like a couple years older, and they'll be like, hey, that lady's crazy. Just so everyone knows, like, stay away from her. told me about being a vegan. I know the wait, that was Scott's teacher. Oh, by the way, I don't care if you want to be a vegan. Just a weird way to go about trying to indoctrinate a nine year old. You don't
Emma 1:07:39
know. I agree. Like, whatever.
Scott Benner 1:07:40
Yeah, it's okay. But you could draw the skull, which was very helpful in the class.
Emma 1:07:47
That was different than other reasons for it. At least.
Scott Benner 1:07:50
I'm hoping she also was using it for that reason, and just whatever she is that it's amazing. Like, that woman's probably not with us anymore. Like I was nine and she was 40. So, I mean, that was 40. I mean, maybe she is but it's so weird. I can picture in my head. She's like a pretty like a pretty lady that didn't shave her armpits. That's how that's how I remember her and a lot of flowing dresses and moccasins and things like that. She was lovely. She really was. Oh, God. I hope she's not that. Time goes by so fast. You have no idea. What do we what are we done? Are we good? We're done. You feel good about this. You're like, No, we didn't get any of the things. How can I do for you is what I'm asking.
Emma 1:08:40
No, we're doing great. I just want to keep talking because this is fun. But oh,
Scott Benner 1:08:43
we can keep talking. What do you want to keep? It's like it's it's over an
Emma 1:08:47
hour and I know that an hour is about so I don't want to be if no one's gonna listen to a two hour long episode. Sometimes
Scott Benner 1:08:53
they know. But yeah, you don't want to be a sinner. You don't know the word. Yeah. Do you know that we're actually don't know. Okay. I think it's the dish.
Emma 1:09:03
Dish, okay. But you don't know what it means.
Scott Benner 1:09:06
I mean, I can use it in a sentence. Like a beggar or a scrounger. A layabout. You don't want to you don't want to you don't want to like try to get more out of this than Is there a beggars basically? Yeah, yeah. Anyway, a sponger a beggar, Schnur s ch, n o r r. Er. Can I tell you a story? Since you want to talk more? Yeah, no, yeah, go for it. two weekends ago, I spoke in a private event. And this private event was completely for Orthodox Jews, adult couples, hey, you know, one side of the couple had type one on the other side was the spouse and they were there to learn about diabetes stuff. This was like a two and a half day event. So I am immediately excited because I'm going to be able to test my Yiddish like, right, which I am assume is bad. And people will be able to, like, you know, help me with my pronunciation of my understanding and stuff like that. I had a couple of a couple of times where it actually worked out for me pretty well. At one point, I was giving a talk to like 400 people, if you can imagine. And somebody said, thank you. I said, No, no, it's my pleasure. Can I ask you to do something for me? And they're like, yes. And I said, How's my pronunciation on this? And they looked at me really quizzically, and I went hockey, me and China, UK. Oh, so much laughter because people like how do you know that? They helped me apparently, my pronunciation pretty good. And then they helped me understand the saying, which I use as like, like, I would say, like, like, If Emma like, if I asked you some questions, you wouldn't answer them. I might say moi. You hotkey, me and China, UK. And I'm like, but that's how I would say it. And they were like, I think like, it means like, banging on a teapot. And, but it means the bat, like bothering somebody, like, why are you bothering me? Why are you banging on this teapot? And I was like, okay, so they told me I was using that. Well, I was pretty excited. And yeah, it's, uh, meaning chopping or banging on the tea pot, realizing it will make lots of noise and then break. I don't know. So why would you? Why are you hockey me in China? I don't know why it's like use like that. So then, we had these great exercises at meals, where they would bring myself and another person that was speaking there. They bring us the dish that everybody was about the they'd say, Hey, tell us how many carbs you think we're isn't this, which was really cool. Because it was it was Chavez. And a lot of the food was just very carb heavy. And I don't even know how you'd be able to like, tell like it was just it was crazy. So they bring this one thing, and I'm up on a riser. So I'm in front of like, 200 people. It was kind of weird. They had us up on a table, like I was like, we were at a wedding, me and the other guy, like felt like we were getting married. And they put the dish up in front. And I stood up. And I kind of made a show of it a little bit like made some faces and covered my mouth like oh my gosh, and stuff like that. And I'm looking at I don't know what I'm looking at. So I take a fork, and I spear this thing. And I hold it up. And there's laughter I'm like, what, what is this? What is this? And everybody's like, it's a kiss guts a kiss gun, like I'm hearing that from all over the room. And they're laughing because I don't know what it is and everything. I'm poking at it with my other finger while tying from the fork. And I said I don't understand. And this woman comes up you know, that kind of helps leave the room and she goes, what is it? You don't understand she grabs the microphone. She says he doesn't understand. I'm like, I don't understand if this is a Kiska. Then where does the saying eating my kiss goes out come from. And that led to like, oh my god, so much. Laughter people were having a great time. So what I learned was a Kiska, I think is like something like inside of like an animal like in its stomach or something or it's your kiss goes. And so if you're like, breaking someone's balls, like why are you eating? Why are you digging it my insides? Why are you eating my kiss goes out. And so I got to do all that. Why was that the thing and I have to tell you. Such a good time. Yeah, I got to be. Alright, here's my last thing about this. I got to be the shot. I got to be a shabbos goy. Do you know what that means? No. What is that? Okay. So going means non Jew. Okay. And Shabbos is you know, the time from sundown Friday, sundown Saturday, where Orthodox people don't use electricity. So they're not allowed to use any like electric. Now there this, this group had kind of like a, I don't know, a pass from the rabbi to use their insulin pumps and their Dexcom and stuff like that. But at the end of the the first night, I was getting on the elevator, which by the way, was a private elevator for me because no one else in the whole setting could use the elevator. Never. Oh my god, I was terrific. I never waited for an elevator for 24 hours, zip zip up, down. But I'm standing waiting for the elevator. There's a woman standing near me but she's waiting to go up the stairs. And she appears to be waiting for another person says this guy comes up and they start speaking to each other in Hebrew. And they clearly are talking about me. So I'm like, sort of sitting there going like what's going on? And then I and then she goes to him in English. He goes he doesn't know what that is. And I was like, what what do I not know? What is this? Like, where's this going? And then I heard him say like, kind of in broken English and kind of in Hebrew Chava school. And I went way, way, way way Wait, and they're like, Yeah, I'm like, I know what that is. I was like, I would totally do that. Like any Like, Oh, good, good, good. Like meet me in front of room. You know, he's like you're on the sixth floor, right? I was like I am he goes, you can meet me in front of my room. He gave me the number. So obviously, am I beat him to the room because I had the elevator and he had to run up six flights of stairs, but, and not insensible shoes either. And so and so I'm waiting at his door, because do you know why he wants me? Why to turn off his lights for him? Oh, right, because it's midnight. And so yeah, he stops me. He goes, let me make he says something about let me make sure my wife is decent or something like that. And then he goes in, she's in bed. And he's like, come in. So the room is like glowing because there's lights on, right. And she's in bed with a blanket pulled over her head, I'm assuming trying to sleep with this 100 watt bulb like glaring at her. And he kind of can't tell me. He's not allowed to tell me what he wants. So I just kind of walked in the room. And I'm like, reaching out for the Switch, like this one. And I got the little vibe, and I clicked it off. And the voice from the bed goes, Oh, thank you so much. And I was like, Oh, you're very welcome. And so I get the walk out again. But there's a light on in the bathroom. And I gesture to that one. And he gives me the like, no sign. I'm like, Oh, he's probably going to close the door. So we can still have the light overnight. If he needs it. was very, it was very interesting. I learned a lot. That's so interesting. Yeah. But here's my big takeaway, because they asked me on my last day, like, you know, what did you What did you? What did you take from this? What would you like us to take from this? I told them what I wanted them to take from it about timing and insulin and stuff like that. And I said, what I'm going to take from it is that when I got here, I mean, there's just no doubt, like your religion is much different than anything I've ever seen. They of course, have a very specific way of dressing and everything, which when you first get there, it feels like you're at another time almost. It's weird. But once I got to know them and speak with them, what I can tell you is that they were literally no different than anybody else I'd ever met my life. Wow. Yeah, it was very, it was just a great experience to have that because if somebody was going to be different based on how they look, this would have been the spot. But I got into small groups with people. They were lovely, funny, thoughtful. Not nothing. Nothing different than anybody else I've ever met my whole life. So no, it was it was really interesting. Yeah, see, and by you saying you want to stay on for a little longer. I got to tell the story. I was never going to tell on the podcast. So. Yeah, I hope to do more speaking. I haven't done a bunch since COVID. And it was nice. Yeah. Yeah. For sure. Yeah, really cool to see to. It was really excellent. Again, to impact people like in real time. And to watch them have like, I know you guys are listening and having reactions, but I don't get to be like, I don't get to be on the other side of it. You know, because I'm pre recorded. But it was nice to see people come up to me with their CGM, and say like, Oh, I did the thing you talked about in the thing and look at how flat my line is, or Yeah, like the rabbi came up to me afterwards, and told me that his blood sugar was 72 after Shabbos dinner, and that he's like, it's never been that steady or low. And it's like, that's great. That's what you do. He goes, I did what you said. I was like, Oh, cool. So I was like, Oh, that's nice. Like, I don't get feedback like that often. So yeah,
Emma 1:18:32
no, that's great. And I think that's also why the Facebook group is so nice, too, because we get to, like, interact with each other and interact with you in some cases, too. Yeah.
Scott Benner 1:18:41
No, I appreciate very much that because that is the only time. That's the only feedback I get usually. Yeah, yeah. Okay, emails are overwhelmingly, generally positive, although someone yelled at me the other day, and it was actually really upsetting Emma?
Emma 1:19:01
Like, why? Why would they do that? Like, just keep it to yourself when
Scott Benner 1:19:05
they said I was going to kill people with my reckless ideas about diabetes. I guess it's been on for nine years. I was like, I don't know if it's reckless as they've been about 27,000 doctors on here saying this is what they tell people. So like, alright, but it was, um, somebody was mad. You know, I don't know what it was about. They didn't give a lot of context in their letter. And I read it, and I put it in my brain as something somebody thought and then I deleted it. So I'm okay now. But you know what, like, what was I going to do? respond back and go hi, I don't know if you know how the world works. But at the beginning, I say nothing you here on the Juicebox Podcast should be considered advice. They said, stop pretending to be a doctor. Like I'm pretending to be a doctor. I call myself an idiot six times a week. I tell people don't listen to me. Don't make me come out and say what do I say? My wife doesn't listen to me. You shouldn't Neither, it's very clear that I'm not a trusted source. Anyway, it made me sad for a minute, but then I, you know, I let it go, you
Emma 1:20:13
know, and compared with the amount of people that you help to, like, the you shouldn't let just one person being angry, you know? No,
Scott Benner 1:20:22
I didn't, but it's hard not to, like I could if I could write you an email, Emma, that has nothing to do with your reality. And still, if you read it, you'd be like, Oh, God, that hurts. For sure, ya know, like, especially when you're trying to help. And you're seeing overwhelmingly how much it's helping people. And then the, my first thought was, oh, gosh, did they misunderstand? Like, did they hear something and misunderstand something? Or did they may be like, maybe this is just a low carb person who's like, you know, you tell people how to use insulin. You know, that's not good for them. Like, I don't know what they really meant by it. You know what I mean? But it's, you know, it wasn't fun, but I didn't hang on to it very long. Just, I looked at it. And I was like, alright, well, that's somebody's opinion. And then I considered responding. And I thought, I don't know. Like, where's that gonna go? So? Yeah, I just kind of got rid of it. But anyway, you're doing well, that makes me happy. I'm
Emma 1:21:18
in the fives now main thing, which is good. Get
Unknown Speaker 1:21:21
out of here. Seriously? Yeah, that's
Emma 1:21:23
excellent. I went, Yeah, my, like, six months after diagnosis, I was 5.1. Which was great. And then after that, like I've started, like, learning how to eat food that I actually want to eat, you know, like fun food. And so it's, it's went up to like, 5.3. And I think now it's at 5.5, which I'm okay with, because I'm eating what I want. It's still pretty good. So, yeah,
Scott Benner 1:21:50
it's amazing. I mean, not just amazing, but also a lot of Cuban food mixed in and you're doing. what's your what's the basis of Cuban eating? Like, is
Emma 1:22:00
it raw rice and beans, rice and beans? A lot of meat.
Scott Benner 1:22:04
Pork? That kind of stuff?
Emma 1:22:05
Yeah. Sounds good. Plantains, too. Has he?
Scott Benner 1:22:10
Your boyfriend? Is he born here? Was he born in Cuba?
Emma 1:22:14
He's born here. But his both his parents are
Scott Benner 1:22:17
from Cuba. But everyone's here now.
Emma 1:22:20
For pretty much yeah,
Scott Benner 1:22:21
get to go back or does it not work that way? His mom
Emma 1:22:25
has gone back few times. But his dad has it because, you know,
Scott Benner 1:22:32
anger harder? Yeah. That's interesting. Well, is your your boyfriend being just like, like, he's first generation. But is he like incredibly American? Or is he like, did He mean or does he have Is he a blend?
Emma 1:22:47
He's He's very American. Yeah. And, like, to the point even that, like in Cuban culture, even in Miami, because Miami is basically like Northern Cuba. It's it's, it's more like Latin American minute is America. And there's a lot of like a cheese Mo and like, just like kind of toxic masculinity. And he's not that way at all. Which is awesome.
Scott Benner 1:23:13
Yeah, I wouldn't imagine you be with him if he was like, a jerk. Right? Oh, my God. And I agree with you about the Facebook group. I want to say it's one of the things I don't I can't believe this is how my life has gone. But I'm most proud of a few things. And one of those is that Facebook group and how it helps people. Yeah,
Emma 1:23:35
yeah, for sure. And there are people in there that don't even listen to the podcast, which I think is kind of wild.
Scott Benner 1:23:40
I do too. And it's upsetting by the way, to me, I'm personally making this podcast, but it's, it's good. Because what I've learned to imagine is that they were never going to do it like some people have. Some people's like vibe is like you're sure like I'm gonna dive in, I'm gonna find things out like that kind of thing. And some people are just like, please just tell me the answer. I don't want to know more than this. And I'm happy for those people to still have direction. I mean, I'd love for them to listen to the podcast, there's no doubt if everyone in that Facebook group, if everyone in that Facebook group subscribed to this podcast today. I mean, there's so many people in there it would this would be one of the biggest podcasts in the world if that happened. And it just it's not because some people just that's not the way they get their information, I guess, to shame because then they they they're never going to hear about the sharpest boy, do you think I could make that the title of the episode?
Emma 1:24:38
About you? Sure.
Scott Benner 1:24:39
I mean, it would like it really gets away from you, which I don't appreciate it. But
Emma 1:24:43
then they'll listen to the whole thing because it happens after an hour or so they'll gonna listen be like, Why is the sharpest coordinate and remember, listen, go with
Scott Benner 1:24:50
me. You're in my head. Where are they will or they'll be like, I don't wanna hear about that. Like, I don't know, I like diabetes breakdown. I do think that's a good one because we broke down by PDS today while we were talking. Oh, true, and you had a number of breakdowns while you were breaking out you were learning about diabetes over the last year.
Emma 1:25:06
All the time. Yeah.
Scott Benner 1:25:08
Let me ask you a couple of like brief questions about ozempic. And then I am going to, I'm going to reiterate to you that if you stay on it for a good long time, I absolutely want you to come back and talk about okay, okay, cool. So, you started at how long? Have you been doing it?
Emma 1:25:24
Just a week, not even a week I first injection was last Tuesday,
Scott Benner 1:25:28
snap, and it's helping you already? Yeah.
Emma 1:25:31
Well, okay. So wait, wait, here's the thing is that I'm also on my period, which also, you know, messes everything up. So I don't know how much is, is my menstrual cycle and how much is ozempic? But like, I've been using, like half as much insulin.
Scott Benner 1:25:47
So do you usually use less insulin during your period?
Emma 1:25:52
Like, for the first few days before my period, I'm like, super sensitive. And then like, when my period starts, I get super resistant.
Scott Benner 1:26:02
Do you ever sing the song? Oh, ozempic. No, no, I will know. Yeah. Awesome. What a great jingle. Like, whoever wrote that. It's like a genius. Okay, so have you do you have weight to lose?
Emma 1:26:20
Oh, yeah. I mean, I've I've gained a little bit of weight this semester, because I wasn't like walking to win from school. Yeah.
Scott Benner 1:26:28
Did you lose weight the first week? I mean, during your period would probably be difficult. But
Emma 1:26:32
I haven't
Scott Benner 1:26:34
weighed myself. I don't know. You gotta weigh yourself. That's the whole up. Sorry. I'll do that. Let me down. I'm like, so yeah, start weighing yourself like weekly if you want to, I do it every day on the weego V. I have lost 15 pounds so far. And hold on. I keep my used. I keep my use pens here so I can keep track. So I have. Okay, so I've done four injections at point two, five milligrams so far. And three injections at point five, which I guess means I've been doing this for seven weeks. And tomorrow is my fourth injection of point five. And then the next week I go up to one. And I've lost like 15 pounds so far. Yeah, so and I haven't done. I haven't done much. I mean, I'm eating more salads and roughage in general vegetables. My wife started gardening. So we have a lot of fresh like salad like lettuce and stuff, different different kinds of lettuce. And I get you just can't eat as much. Are you finding that you can't eat as much or has it not hit you like that yet? All right.
Emma 1:27:50
No, my app. My appetite is like, kind of non existent to Yeah,
Scott Benner 1:27:54
it's sometimes like, like, I'm in trouble now. Because I'm a little woozy right now, because I haven't eaten yet today. So I got up. Yeah, I got up and I was like, Oh, I'm gonna eat now. And then I didn't have a chance. And then I was like, Oh, I gotta have I have to get something done for the podcast, like some back end stuff. That's boring. And, you know, if you always subscribe, I can hire somebody to do and but anyway, so I'm doing like, clerical stuff, right? Yeah. And then I'm like, oh, I should eat now that I'm like, I don't want to eat right before I like record. So I'll wait. And then we went a half an hour longer than I expected it and I'm not hungry. Like, yeah, my stomach isn't telling me when I'm hungry. My brain is not telling me I'm hungry. I only know I'm hungry because I'm getting drifty in my head. And that's the only way I can tell that I haven't eaten. So what I will tell you is eat on a schedule. Because you're not going to think to eat if it's working on you. Right? Yeah, just. Yeah. It's interesting, isn't it? Yeah,
Emma 1:28:54
it's crazy.
Scott Benner 1:28:56
Yeah. Did you get any, like, uncomfortableness in your stomach? Or, God, I'm not gonna lie about it. It's only been a week. I'm not going to ask you if your stool has changed, because that's just a weird way to talk to people. I'd almost almost just rather ask you if you're constipated or have diarrhea, but, but haven't had problem with any of that. Yeah,
Emma 1:29:16
no, myosin. It's been fine. My so I've been getting my period though. So like, I've had some like cramps in my abdomen. Like I don't know if it's like the medication or my period is the thing. Well,
Scott Benner 1:29:31
I can tell you that on Saturday when I woke up at the the event I was speaking at to learn that that a very common thing for them to eat on Saturday morning is cheesecake for breakfast, and I was like, these are my people for short cheese. And then I went over and they were kind of these ornate cheese cakes. They were very like, like they had chocolate on them and other stuff. It wasn't just like, cheesecake. You know what I mean? And So I'm like, I don't think I can eat this because of the weak Ovi, but I don't want to insult them and I sink. So I took a piece, and I took a spoonful of cheesecake and it sat like a rock in my stomach. That was like so upsetting. Like, I was like, Oh, I had like reflux from it and everything. I'm like, Alright, cheesecake. Can't do that, like mental note. But I had, like the over fullness feeling hit me really hard in the first three days of my first injection, but that's gone away since then, like I can eat through it if I need to. Like if I don't know what that even means. I guess if I wanted to overeat I could. I don't know how much I haven't pushed it. But yesterday I made a wrap, like two eggs. Two eggs, a few ounces of chicken. I put the cook them together with some mushrooms. I threw them in a wrap. I couldn't even finish them. I couldn't finish the wrap. Yeah, I was like, Oh, yeah. So you're having all those experiences already in just a week?
Emma 1:30:57
Yeah, pretty much. Yeah. Like I get full so fast. No appetite. Yeah, that's those are the biggest changes. I haven't. There's not much else. Like my doctor said I might there might be like nausea and like vomiting and like things like that. And I haven't.
Scott Benner 1:31:14
And so and your insulin needs went down already. So I can't wait to see how long because I think this is going to be why am I asking about this? I think this is going to be a very popular treatment for type two and type one diabetes. Like yeah, moving forward in the future, like I foresee a time where people are doing this with a lot of regularity. It just, it's crazy how well it works. Well, honestly, I'm a pound away from being the lowest weight I've been since 2019. I think. Yeah. And just for not like for like click click, and that's kind of the end of it. So anyway, you if you stay on it, please let me know. Okay, even if you stay on it for like six months, like reach back out and say, Hey, I'm still on this. And then we'll start making plans for you to come back. Okay. Okay. Emma, thank you so much. You were really great.
Emma 1:32:13
Thank you often.
Scott Benner 1:32:14
That's my pleasure. Hold on one second for me.
How about Emma, thank you so much, Emma for coming on the show and sharing your story with us. A huge thank you to one of today's sponsors, G voc glucagon. Find out more about Chivo Capo pen at G Vogue glucagon.com forward slash Juicebox Podcast spell that GVOKEGLUC AG o n.com. Forward slash juicebox.
Thank you so much for listening. I'll be back soon with another episode of The Juicebox Podcast.
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