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Podcast Episodes

The Juicebox Podcast is from the writer of the popular diabetes parenting blog Arden's Day and the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad'. Hosted by Scott Benner, the show features intimate conversations of living and parenting with type I diabetes.

Filtering by Category: Dexcom

#801 How We Eat: How Jenny Eats

Scott Benner

How Jenny Eats

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome to episode 801 of the Juicebox Podcast

today, I'm going to add to the how we eat series. Now, so far in this series we've covered vegan, carnivore plant based gluten free low carb, Bernstein FODMAP keto flexitarian intermittent fasting and today, I thought it would be interesting to find out how Jenny eats. Now you know, Jenny, she's from all the management episodes, diabetes, pro tip, defining diabetes, bold beginnings Jenny, it's Jenny. Today I'm going to talk to Jenny about how she eats. I thought you might find it interesting. She is a person with an astonishing amount of control over blood sugar, and I thought it would be valuable for you to hear about. So while you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin. If you'd like to find the other how we eat episodes, just go to juicebox podcast.com and scroll to the bottom there's a whole cascading list of them there. You can also find them in the private Facebook group in the feature tab. That's Juicebox Podcast type one diabetes on Facebook. This episode of The Juicebox Podcast is sponsored by Ian pen from Medtronic diabetes, if you don't want an insulin pump, but you want some of that functionality that comes with insulin pumps, you might want the ink pen. Learn more and get started today at ink pen today.com. You may pay as little as $35 for the implant. Listen for more about that in the ad. Today's episode of Juicebox Podcast is also sponsored by Omni pod. The new Omni pod five automated insulin delivery system is here. Go get it at Omni pod.com forward slash juicebox tubeless and automated oh my goodness, what else could you possibly want? Start the recording. Cool and say hello, Jenny. How are you? I'm great. How are you? Good. You look casual today. Like I like cash. Like maybe you have plans this afternoon where you're not going to be working or something like

Unknown Speaker 2:26
that. Um, no

Scott Benner 2:30
relaxed. You're not relaxed today. I don't know you have a certain sound maybe you're happy. It's Friday. I have no idea.

Jennifer Smith, CDE 2:36
It's Friday. It's Yes. It's it's Friday. It's actually should I was colder today. Our temperature has changed like 40 degrees overnight.

Scott Benner 2:47
Oh my god. Seriously,

Jennifer Smith, CDE 2:48
yesterday, it was 72 degrees. It was beautiful last night when I got home from taekwondo with my kids. And then I woke up this morning and the thermometer was like 34 degrees. Like, kidding me.

Scott Benner 3:04
You live in a hellscape. It's terrible. I mean, it was like 80 here for a couple of days. And I mean, it's November, and you're like what is happening? But then very quickly, overnight, it's getting cooler and cooler. And it's gonna happen really fast. Yes. Anyway, it's

Jennifer Smith, CDE 3:20
coming to you. Well, it's spreading. Let us

Scott Benner 3:23
let us let us do this today with the people and then we will go on our way. Oh, freeze your butt off this weekend. And I don't know what I will do. It's supposed to

Jennifer Smith, CDE 3:30
be in the 40s this afternoon. So better.

Scott Benner 3:33
That's a Wisconsin answer. Better. I just had, I just had a an organization invite me to come to Montana to speak in March. And I was like March in Montana. I'm not sure about that. I guess. Yeah. Well, I need snow shoes and, and I said, Look, I started saying, Look, I really would like to do it. The event sounds great. I say Can I fly straight in? And they're like, No, you'll probably have to get on like three different planes. I was like, I yeah, I don't know if I'm okay with that. Can we? Virtually. So they weren't sure that the last plane would be a jet. And that's that threw me off for some reason. You get the puddle jumper. Oh, it was like I'm not doing that. I'd love to see Montana, but not that badly. Anyway, Jenny, I thought today would be a great day for you and I to talk about how you eat. We've been talking about this for a number of years. Actually. I always say to Jenny, like at the end of the year, I'll do an episode with you. And we'll talk about how you eat because I have a whole series where people come on and they're like, I'm keto. I'm a flexitarian. Actually, I think I learned the word flexitarian on this podcast, you know, and all that stuff. So today, I just wanted to go I wanted to go through that. Are you comfortable with that?

Jennifer Smith, CDE 4:47
Yeah. Basket way.

Scott Benner 4:51
So I guess my first thing I should do just for people who may be, you know, come in and out of the podcast and don't know you as well. If at diabetes for let's test my memory, are you up to 33 years now or 3234

Jennifer Smith, CDE 5:06
and a half 34. My gosh, Jimmy,

Scott Benner 5:09
and that made you how old when you were diagnosed? I was 1313. All right, we won't do the math 34 plus 13. That's no one's business, but yours. It's 47. But so you've had diabetes, since you were 13 years old, you were diagnosed a very long time ago, we've talked over and over again, about your you know, how your management was when you were coming up. But we don't talk as much about how you've eaten through different segments of your life. So I'm gonna go back all the way to you being 13. And ask, did your mom adjust eating when you were diagnosed? That you know of a long time ago?

Jennifer Smith, CDE 5:51
No, I and I was old enough to know or recognize the change or the difference, right? Did she change how she cooked? Not really, because, I mean, my mom grew up with four siblings. She was the oldest, they lived on a farm. So she ended up doing a heck of a lot of the cooking. Yeah. So they she always was a cook. I mean, the amount of times that we went out to eat, or even fast food or something were very minimal. So she was used to already cooking, the biggest change, I think, was that I don't think I ever remembered measuring cups outside of making cookies at Christmas and cakes. And you know, where you have to use the measuring tools to obviously get it all right. But man, we got more measuring tool, tools and the bouncy like scale that we put the meat on to weigh the perfect portion. And all of that kind of stuff. My mom did change all of the desserty types of things. I mean, they all became sugar free pudding and sugar free jello, and, you know, that kind of stuff. But she didn't. She didn't make that specific just to me, it was if we're going to have putting it sugar free for everybody. Okay, if we're gonna do this, it's this way for everybody.

Scott Benner 7:16
But your management at that point is two shots a day.

Jennifer Smith, CDE 7:20
I did two shots a day I did the really old school because there was not what we now have as long acting insulin a 24 hour, we had intermediate which was the cloudy and or NPH. I actually use Lily's, which was called Al or lenti. And so that had to be mixed in the syringe with our insulin or regular insulin wasn't even rapid. And I only dosed it twice a day breakfast. So the regular covered breakfast and then the law, the intermediate acting peaked at lunchtime. So I didn't take insulin at lunch. Okay, I did get a snack in the afternoon as well, which was an uncovered snack, kind of curving the downside shift of that intermediate acting insulin. And then dinnertime I did the regular and the lead day mixed in the same syringe again, and that regular covered dinner. And then I always had to have a bedtime snack because it covered the peak in the intermediate acting overnight. So for

Scott Benner 8:23
people who have a Dexcom now and are operating with you know, I don't know modern insulin, excuse me once with modern insulin, even if they see a peak at dinner and everything goes well, their their their bell curve probably goes over like two or three hours, right? I mean, they might spike up a little bit. But you were basically running two bell curves a day morning. So you were mixing make sure I understand this right because I'm I'm Arden comes into diabetes long after this. You're mixing two different insolence into a syringe, shooting it in the morning. One of them is handling breakfast, and the other one's going to come online in time for lunch. Then you shoot for dinner the same mix, one of them handles dinner but then you have to come around at the end of the bell and eat again to stop yourself from getting a little before bed

Jennifer Smith, CDE 9:13
are into the midnight hour. Yeah, because intermediate acting was really like a peak of about five to seven hours. So again, breakfast time I'd eat somewhere between six and 7am. So the regular insulin covered that and then the intermediate acting was peaking by lunchtime at about that same five to six hour mark. So lunch would get covered or that in that intermediate would cover lunch and the same thing for the evening. There is no way to cover in all over over the night basil need because there wasn't anything besides intermediate at that point. So in order to hit the the kind of insulin the way that it needed to at its peak without getting low overnight, I had to have a snack before I went to bed.

Scott Benner 9:58
I see and I No, I remember this from our previous conversations your mom was the one thing she was a stickler about is the time you ate. Is that right? Yes. Yeah.

Jennifer Smith, CDE 10:08
I think the reason that I literally cannot sleep beyond like I will wake up even before my alarm clock goes off at like, six 615. Because it was, that was the time it was breakfast. It was time Jenny had to have her like first dose of insulin because that was a 12 hour window. until dinnertime, when I got my next dose of insulin. Yeah. And they had to be spaced apart enough. So I think the reason I wake up so early. Like, I was just wired that way. Yeah. So So

Scott Benner 10:39
she, she, your mom was looking and saying, If she eats at 6am, than the way this shot works, we'll be good for whatever lunchtime is at school. And then it'll be out of her in time that we can shoot it again for dinner, or dinner. That's why your later snack almost. So were you up late at night as a child?

Jennifer Smith, CDE 10:58
I wasn't I mean, again, child wise, I was 13. So I was probably going to bed. In fact, I know I wasn't going into bed until maybe like 10 o'clock, and I'd have my snack around like 930 ish.

Scott Benner 11:12
And then after that, carry that off to bed. No one tested you overnight or anything like that.

Jennifer Smith, CDE 11:18
Nobody tested. Oh, no. Oh, my goodness. No, that wasn't even like a thought unless I woke up and didn't feel good. Which did happen. Or for some random reason my mom was up overnight and wanted to check on me. But outside of that, no, there were no checks overnight, it was bedtime. fingerstick wake up in the morning, do it again. And

Scott Benner 11:39
the way you ate during that time was more about almost kind of food pyramid thinking. Like a little bit of this, a little bit of that a little bit of this at certain weights more than anything else.

Jennifer Smith, CDE 11:50
It was and you know, I think I think there's some practices that do okay with this with kids. And other times I've talked to people and they've said, you know, nobody focused on what my kid needs nutritionally. They just told us that we can eat whatever we want to eat. As long as we cover it with insulin and your blood sugar stays here, then that's fine. Were when I was first educated, the dietitian and educator I worked with looked at what are my nutritional needs based on where I am in life and what my activity level is like. And then they planned out sort of a caloric plan and fit the macronutrients in a certain percentage into that plan. Okay. Yeah. So, you know, I got certain portions of food that got covered with what's called a standard amount of insulin just for the food at that mealtime. I mean, I can still remember like lunch and dinner, I got two starches, two vegetables, a fruit, two to three proteins, one or two fats and a milk. And you did you that was lunch and dinner every single day?

Scott Benner 12:55
And did you have to finish it all every time? Did you have that pressure? Like I need to eat all this or no, you know,

Jennifer Smith, CDE 13:01
in a way, yes. And you know, being as active as I was, I was probably hungry enough for it all anyway, but I also wasn't, I wasn't nibbling on anything in between, because that just wasn't there wasn't additional insulin, at least not in the first I guess two years after I was diagnosed. And still I until I was taught carb counting, and dosing with insulin to cover a certain amount, then things shifted and became a little bit more flexible in terms of portion.

Scott Benner 13:29
So when that happened when they taught you carb counting? How old were you then do you think? Um,

Jennifer Smith, CDE 13:35
I was in high school? So probably six to finish, I would estimate.

Scott Benner 13:42
All right, so you did that the one you did the first play for three years or so? Did did having access to the idea of carb counting covering meals for how many carbs at work? Did it change how you ate at all? Or did they just sort of eat the same way?

Jennifer Smith, CDE 13:59
I don't think that it changed. What my food choices were because I still had certain preferences, obviously. But it gave me more flexibility in terms of how much okay, right? So if I didn't want to eat all of that food at a mealtime now we had wiggle room to play with, you know, I only really want the peas and grilled salmon for dinner. Great. We could adjust for that a little bit better than saying well, you always have to take three units of regular insulin. So you have to eat this much because this is what your insulin is covering.

Scott Benner 14:36
Yes, that was the big shift is that you had more autonomy over the amounts of food and I could drop I don't want to bake potatoes or something like that. Right? Right. Okay. How long do you think you and what insulin I'm sorry, what insulin was that at that time?

Jennifer Smith, CDE 14:51
That was still regular insulin. Okay. I did not have rapid in getting real excuse me rapid acting insulin. until I was in college.

Scott Benner 15:04
Okay. So so so this first step that you took basically took away the cloudy and you were just counting carbs for and using regular for it. Is that right or no, the first

Jennifer Smith, CDE 15:16
step I took was switching from intermediate acting. And if I had to estimate, when did I switch to Lantus? I think it was 1999. Actually, it was right around the time that Lantus came to market. I was switched from using my intermediate acting insulin to Lantus insulin. And then and I had been switched to rapid acting before the change to Lantus. Okay, so I was using intermediate acting the cloudy along with rapid acting.

Scott Benner 15:55
Okay. I don't know, what was

Jennifer Smith, CDE 15:57
the first change? Oh,

Scott Benner 15:57
how old are you?

Jennifer Smith, CDE 16:00
We just said, I'm 47. I

Scott Benner 16:02
know. But why do I think of you as being? I think of you as being so much younger than me? I don't know why that is. But the data is because I've got younger

Jennifer Smith, CDE 16:10
kids. Maybe. Maybe that is it. You know, I mean, my husband and I just we did a lot of other things before we had kids. And a lot of people do it the opposite way. They get married, and they're like, let's have kids and we just didn't do it that way.

Scott Benner 16:24
I don't know why, like, if you're telling me the times, and you're like, you know, in 1999 I'm thinking 1999. Kelly was pregnant. Like, Cole, I'm like, This is crazy, but I look at you and I'm like, but she definitely said she was 47. So I'm like I

Jennifer Smith, CDE 16:38
did. Yes. In fact, 99 is Gosh, 99 is when my husband and I got married. Oh, wow.

Scott Benner 16:45
Okay. Yeah. This is my fault. Forgive i for getting married too early. I'm throwing off the balance of this conversation. Not you. We were still young, we got married. Really? Okay, so you see, you're covering carbs. It doesn't change doesn't change what you're eating. You're still eating. But what I'm what I'm going to call like a very like 1950s through 1980s Like American kind of blend of foods. Just blade some vegetables and starches, some protein chicken beef. Probably all that stuff was happening.

Jennifer Smith, CDE 17:21
Okay. Yes, absolutely. It was all and you know, growing up in the Midwest. I mean, our starchy things were typically typically potatoes, some noodles, rice occasionally. I wasn't really a big fan of rice as a kid anyway. But I would say more of my like, grainy kind of carby stuff was probably bread. We didn't have cereal was just not something my mom made or purchased. I mean, it was either oatmeal for breakfast or something like toast with peanut butter toast with eggs or you know, something like that for breakfast time. So yeah, I think what really changed was once I went to college, I didn't have to eat what my mom cooked anymore. And I am, I personally am not a meat eater outside of fish, okay, I don't enjoy me. I never did even as a kid. I would, I would have sat at the table for four hours trying to like choke down a burger. That was just not a preference of mine.

Scott Benner 18:35
Did they still give them to you.

Jennifer Smith, CDE 18:36
Of course. This is what you're eating.

Scott Benner 18:41
I want to gently set for an entire evening, five o'clock, six o'clock, seven o'clock, eight o'clock, nine o'clock in front of a plate of French cut green beans that I did not want to eat. And the colder they got, the more good. They were. And you know, I'd be like every 15 minutes. I could get one of these. I couldn't do it. And I remember waking up on a Saturday morning after that. And my mom bringing the green paints back to the tea.

Jennifer Smith, CDE 19:09
Oh, my parents never do that.

Scott Benner 19:11
I was like, Oh God, I'm never gonna eat again. Because like these green beans and and I think I just went into like full on like, I don't know how old I was a tantrum. Probably. I'm thinking I was just probably child abuse, you know, but as far as like a young, young teen, I was like crying. I was like, I can't eat these like you have no idea. I have such trouble with how some things feel in my mouth. Like I'm just not okay with how some things feel. So I wouldn't even know how they tasted like I couldn't get past the part where it's like It's touching. And so, but that's interesting that you didn't particularly like red meat.

Jennifer Smith, CDE 19:52
And as you say like a texture thing. I mean other other textures really. They don't bother me so much and fat I have textures that I really actually prefer in food. But maybe that was it. I mean, even just like thinking about eating meat, and I don't know why fish is so different. Maybe there's a moisture to fish or it's just a very it's definitely different, right? I've never had a problem with fish. But other meats I just saw I got to college

Scott Benner 20:21
last night. Oh, no, no, no, I'm dying to know because I now have some context for what it means to send a person with type one to college and it's not terrific. So

Jennifer Smith, CDE 20:29
yeah, for one, I learned that mom's home cooking with all of the measurement and the skill that my mom put into what literally went on my plate was very different once I was choosing things in the cafeteria.

Scott Benner 20:47
Freezy did you start like,

Jennifer Smith, CDE 20:49
I don't, I wouldn't say I went crazy. Because I was conscious of what I needed to do. Again, I had no CGM. I had no pomp. I went to college on MDI, and, and finger sticks, essentially, while I was doing a heck of a lot more finger sticks. To get more information, I still really kind of had to stick with what I knew about what my experience with food at home did to my blood sugar. And so I use that in terms of figuring out what to choose from the school cafeteria. I often in fact, by the end of my freshman year, I realized that the salad bar was probably my best friend. Okay. Because it was the easiest place to find things that were good in terms of what I saw happening in my blood sugar. And actually tasted like food.

Scott Benner 21:44
Type raise everyone, everyone who now is looking $14,000 a year in the face for room, board and food at a college. It's like great. So my son my son's senior year. He's he just he called us one day. He's like, I'm so sorry, I can't do this anymore. Can I start buying food outside of the cafeteria, but we had to pay for the food. Like you couldn't regardless. Yeah, you couldn't not pay for it. So I'm like, okay, like you don't even like you know, there's a few 1000 more dollars. I'm like, sure. Yeah, go ahead. He's like that. It's horrible. He's like, it's absolutely terrible. So when we took Oregon to college, and the cafeteria was so much nicer Arden's college than it was at Kohl's. We were so excited, like, Oh, she's gonna get real food. But the truth is, it's like she's eating at a cut rate restaurant. As far as blood sugars go every day. You know how people say like, oh, it's tough to go to a restaurant because you need so much more insulin for this food. Three times a day. That's the situation Arden has been in, like so much. So Jenny, that she contacted me a month ago and said, I'm gonna run out of insulin. And she's only there for a quarter. It was it was 10 weeks. And I sent her enough insulin to be like, plus to be off to be fine. Yeah. And she's like that we got to do something, I'm gonna run out of insulin. And I was like, okay. So I called the doctor. And I'm like, you know, I think this is what's going on. But how long did it take you to adjust to bolusing for that food? Because for the first five weeks Arden was there, I would get a lot of text that said, I'm working on it. I'm trying, you know what I mean? Like, and I'm like, No, I know. You are like I could see, you know, because isn't it interesting Nightscout. Like I can see she's Bolus thing. I can see what's happening and everything like that. But she was not having a lot of luck in the beginning. It took her a number of weeks to figure it out. She's finally starting to get it in her like last three weeks of this 10 weeks. And she's doing a good job now. But it took her a month and a half to learn how to Bolus for that food.

Jennifer Smith, CDE 23:52
It's definitely adjustment. I mean, while they're not, by any means the healthy choice, I figured out, or at least I think I did, you know, again, only having finger sticks. I figured out french fries, like at school. So when we would go and you know, food is one of those things that becomes very visibly a social piece of your life in college. If it wasn't in high school. It it definitely is there in college, and especially with the later evenings and like whatever else you're doing. Like who wants to eat carrot sticks when you're sitting around with your friends like studying, right? And so I guess those were some of the things in terms of I wouldn't have gotten that at home as much as I probably ate them at school. But the other things just ended up I figured out they they just weren't even worth it.

Scott Benner 24:47
I just I'm I think I'm watching art and follow the same path to work. There have been a couple of times that I'm like, Look, if you just tell me what you ate, I can help you adjust this and she's like, I don't want to tell you what I ate I'm okay. And I'm telling you, french fries are at the core of that. She's like, you know, you get there late at night all the food's not there anymore, but there's always french fries. Yeah, you know, and then I think you're right. Like, it's the end of a day they get around. They're her roommates, and they sit there and they've got friends. They're chatting and talking about boys and girls and whatever else. Yeah, and, and they're eating french fries. So. Alright, so you. I mean, you obviously made it through and you ate a pretty classic college cuisine. When do you become the Jenny I see before you before. When you become a woman who just says quinoa? Like it's just nothing like like it's a thing we all know about.

Jennifer Smith, CDE 25:50
It's a yummy grain for those of you who don't know. Although I think it's pretty mainstream at this point.

Scott Benner 25:57
I'm not saying that I'm saying that you say keen, while the way other people say chicken nuggets. Just flows. So do you get Do you meet your husband? Do you do like what shifts your eating style?

Jennifer Smith, CDE 26:13
I think? Well, certainly learning to cook for two. And be aware of another person's desires and like preferences in food makes a difference overall to especially when you're trying to follow a budget. I mean, my husband and I did not live together before we were married. So again, it's a, although we knew each other, you know, enough, obviously. Clearly, I wish together for a long time before we actually got married. But in terms of cooking for two people, again, that does shift some things, I think the biggest thing that I learned is that men can eat a heck of a lot of food. So when I'd sit down, I'm like eating, you know, the portion that I had gotten used to eating. I was like, I you're still hungry. Seriously, like what I don't understand, like, where are you putting all this food, you know, so from a visual or just a perspective of of, like my own management, that's something to kind of overcome is seeing what somebody else can eat compared to what you know, is works for you, as well as for your blood sugar control, and that kind of stuff. So I think in terms of what you what you see today, in what I choose, and what I talk about eating is definitely been like an evolution, right, right over our marriage in life with kids and all of that kind of stuff. And I think, while for a good portion of years before we had kids, I had made a lot of the changes that I currently, you know, still use in terms of food, I think it became even more important for me to improve. For the majority of the time once we had kids.

Scott Benner 28:07
Why do you think has to start thinking like, I want to teach these kids how to eat? Well?

Jennifer Smith, CDE 28:12
Yeah, yeah, really. And because, again, with all of the knowledge that I have, about what is in food, and not meaning bad stuff, but like, what's the value in food? Food is fuel, it's like putting gas in a car, right? So if you put in quality stuff, you're gonna get quality health out of it. Well, you know, yeah,

Scott Benner 28:38
so we'll mention that here. Because so when you're in college, what is it you're learning to do? Survive what you do for a living after?

Jennifer Smith, CDE 28:48
All right? And that, that, I guess, that's another big difference. You know, I went to college, knowing where I was going, I had a very clear, I thought it was a clear career path. I was going to go to school to be a dietitian. And then I knew that I wanted to move on and become a diabetes educator. And, you know, the road there, kind of windy and whatever happens, but I learned all those things along the way in college too. Whereas other tracks, I would have never been exposed to the information about nutrition and food and what it does in the body and human biology and physiology. I mean, all those things I would have never known about.

Scott Benner 29:31
Yeah, but it's still even though you learned it in college, it becomes a slower transition as an adult, right, you just start applying what you know, as you go. And correct. And so now

Jennifer Smith, CDE 29:42
well, and to put one more point to that in terms of saying, you know, I think it became more important to me and to really do that after we had kids was because I know what kids aren't taught in school, especially where I really think that needs to begin in terms of overall healthy lifestyle. Some of that information in science alone could easily be taught in terms of this is why you eat an apple, or these are the main food groups and then expanding kind of every year so that children grow into well rounded lifestyle

Scott Benner 30:21
and health consumers really

Jennifer Smith, CDE 30:23
consumer. Yeah, exactly.

Scott Benner 30:27
So, so you're trying to it's interesting, isn't it? Like most of the people I talked to on this podcast, when they make big life leaps? It's almost always for somebody else. Almost always, they almost always say, Well, you know, I was getting by with my agency in the 80s. But I got married, and I started thinking, like, I want to be healthy for our relationship, or I'm gonna have kids, so I gotta lower my UNC or, like, that kind of stuff. Right? It's interesting.

Jennifer Smith, CDE 30:53
And I think something there too, in terms of asked, you know, well, we ended up bigger shift to like what I'm doing now kind of happen, it actually happened right before we were planning to, like, try to have kids, I started to see a naturopathic doctor. And which they're amazing. If you find the right person, I mean, the amount of time that they spend with you, and the really in depth that they look at your life and kind of everything that works together. It's, it's really amazing. But just some of the things that I brought to the table in terms of concerns. I mean, besides type one diabetes, I also have rheumatoid arthritis, which is really well managed. And but some of the things that I learned from this practitioner changed some of the ways and some of the things that I ended up, including in my diet, okay, because we did some allergy testing, and we did some sensitivity, you know, evaluation and kind of, like, how do you feel when you eat this food, like a gut health kind of analysis and all that sort of stuff? So I did, I made some really good transitions from that into kind of where I currently am and I've stuck with, you know, 99% of those shifts and changes do you think

Scott Benner 32:05
because your your, I mean, I think of your diabetes, as well managed throughout your life, for whatever the management style was at the time, right, your your returns, your agencies, and that kind of stuff fit in a healthy a healthy level for whatever the management was at the time. So how much of your eating is about the RA? Is is like are there things you're trying to avoid for that?

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Jennifer Smith, CDE 37:09
The biggest thing, honestly, that I I find affects how I manage it. And when I know I've had more than what I can kind of tolerate is cow's milk dairy.

Scott Benner 37:25
Okay, that's,

Jennifer Smith, CDE 37:26
that's the biggest thing. I mean, I went through all of the different like, sort of you you take foods out of your diet, you evaluate you add some things back to see how you react to some things. I mean, many times RAs are also very sensitive to what are called the nightshade vegetables, things like peppers and tomatoes and eggplant and that kind of stuff. And I ate a heck of a lot of tomatoes. And I see no difference whatsoever. When I did my food kind of elimination sort of plan. The biggest shift was definitely around dairy specifically, again, cow's milk based, because I can do like the cheeses that I will buy or either sheep's milk or goat's milk again. I don't eat them every day. They don't bother me if and when I do eat them. But I can tell like, if we go out for pizza. There's like real cheese on the pizza. I mean, even though I don't eat the whole pizza, I can tell the next day that I'm stiff. Okay. I can tell in my joints quickly that I've had dairy.

Scott Benner 38:30
Yeah, that's really interesting. So so so Okay, so let's let's go into the homestretch with, let's kind of go through one of your weeks and really find out how you eat so Okay, let's just start today because you've, you've woken up today already what you have for breakfast.

Jennifer Smith, CDE 38:46
So I had raspberries from my mom, my mom's garden. So they were frozen raspberries. Obviously. It's freezing outside right now. There are no raspberries left on the bushes.

Scott Benner 38:59
I want to be clear, you met your mom pick the raspberries earlier froze them and you ate them that they froze overnight with the temperature.

Jennifer Smith, CDE 39:06
Correct? Yes, absolutely. So frozen raspberries. And then I had a it's a sheep's milk yogurt with it. And then there is a really awesome grain free granola that I like it's made by nature's path. And that's literally what it's called is grain free granola. So I mix that all together and I had that this morning. I mean other breakfasts are typically like old fashioned oats, a small amount and then I use things like chia and hemp seed and ground flax, some coconut oil and cinnamon. spoonful of like nut butter in it, mix it all together.

Scott Benner 39:47
How many carbs do you think your average breakfast is?

Jennifer Smith, CDE 39:51
Yeah, I can absolutely tell you so for my breakfast I had this morning. I count 18 grams for it. For my typical oatmeal Well, I count 26 grams for that.

Scott Benner 40:03
Okay, do you see spikes?

Jennifer Smith, CDE 40:07
Not unless I have a bad site. Or sometimes when I know it's a couple of days before I get my site, my period, I'm more prone to potentially having more of a rise up after the oatmeal. It doesn't typically happen with the the granola and the berries. So,

Scott Benner 40:32
yeah. Do you ever get up in the morning on a Saturday and go crazy? Do you ever make a stack of pancakes or french toast or bacon or something like that?

Jennifer Smith, CDE 40:42
I I wouldn't have bacon, but I get what you mean. Yeah, we we do pancakes. But again, the pancakes that I make are tend to do much lower carb, lower glycemic pancake. And my kids don't. They don't complain about them. They eat them. So does my husband. So I'm like, Well, I'm gonna cook them the way that I cook them because they're good for me. And so clearly, they're good for them too. I mean, I usually use like an almond flour and a coconut flour. I've got a couple of good recipes that I follow. I might put some pumpkin puree in them or some of what's the lily brand like the low sugar like mini chocolate chips kind of in maple syrup. I just don't I don't even eat. I don't eat honey. real maple syrup. I figure why. And that's just my choice. You know? Do you like your maple syrup, have it but I usually use the Lecanto maple syrup, which works really nice and it doesn't affect my blood sugar. So I have to say,

Scott Benner 41:47
I don't love maple syrup either. If I'm not we use like a low carb syrup on the house. I think we use Karis most of the time.

Jennifer Smith, CDE 41:56
Yeah, that's a that's a common one. Yeah.

Scott Benner 41:58
And, but if I, I'm, I'm perfectly happy with it. Like, it doesn't bother me at all. If I'm gonna go crazy with syrup, which might happen once or twice a year, I want like, I don't know, I want something that could also be like motor oil or something like that. Like, when you're when you're eating it, you're like, This isn't even a natural flavor at all. Like I'm in a diner where we're all going to die. When was the? And even at that, it's like, wow, it's a lot. I can't really do a lot of that. And I'm saying, We haven't made a ton of adjustments to I mean, you know, I guess I'll do an episode one day about how I eat. But I grew up very badly around food. Like nobody understood food around me. And my wife and I took us years to our 20s to like even make sense of like, fire we I still joke my wife is like, I shouldn't say this here. But my wife like is like, the sheets like she's homeless. And she's happy about it. Like, like, we have, like we have 10 cents in the bank is how she eats and that's when she's happiest. But she grew up broke. And eating that way. And I don't know, it just it's what occurs to her, you know. But anyway, my question and the reason I brought that up is your kids have your palate, do you think you taught it to them? Or do you think that it was theirs all along? And you just met them there?

Jennifer Smith, CDE 43:23
That's a really as a good question, because I I don't know, I think some of it might have transitioned from what I ate while I was pregnant. Because, you know, broccoli for a really good example. Broccoli is both of my kids will always eat broccoli, they will eat it steamed, they will eat it raw, they will always eat broccoli out of any of the vegetables. And I think it's because whether this is true or not, I think it's because it was one of the few vegetables in both pregnancies in my first trimester that I could actually stomach. Okay. And I eat a lot of steamed broccoli with Dijon mustard. That's what that very well for me. Why I know that's very bizarre, but that's what worked. And as soon as they introduced it, you know, once they started doing like table foods and that kind of stuff. They had no complaints. It didn't come out of their mouth. So maybe some of it is but I think some of its learned Yeah,

Scott Benner 44:25
I don't want to make you feel sad. But Kelly was pregnant with call and she had a very her palate while she was pregnant with Cole was very clean and healthy. And Cole is it's more like a boy. You know what I mean? But with Arden Kelly a crap like a lot of like for some of it and art and eats very, very well. Like like art and art is the one who's like, well, I'll sit and eat carrots or I'll do this right. You

Jennifer Smith, CDE 44:52
know, like, do you think some of that though for Arden is relative to such an early diagnosis.

Scott Benner 44:57
But I will gently I didn't Oh, like the the person who you're talking to now is not the person who grabbed that two year old baby was like diabetes, okay? Like, I mean, we were, you know,

Jennifer Smith, CDE 45:08
I was theater carrot.

Scott Benner 45:10
We didn't go that way, like I spent two years going like why can't I figure out how to Bolus for cereal, you know, like, like, like what you see online people are just like, I didn't adjust at all. And it didn't occur to me at first. Because like I said, we didn't grow up well around food that some of these foods were better than others or whatever. I mean, I know now and excuse me, we made you know, adjustments. My first big adjustment as a parent was not buying frozen chicken nuggets. That was the that was my first lightbulb moment. I thought like if I'm gonna give these kids chicken nuggets, why the Hold on I go get some chicken and bread in the oven and give it to them. Right and, and I did that, like if it wasn't easy, because by then they knew what um, like a nugget was from McDonald's or from a frozen bag and it was cut like a dinosaur or something like that. So at first they're like, this isn't chicken. I was like, oh, god, look what I've done to you. You know what I mean? Like, like, you don't think chicken is chicken. You think whatever that crap is this chicken. Okay, so, alright, so you will have a splurge. But your sport stays more in a clean lane.

Jennifer Smith, CDE 46:20
For the most part, yes. And a splurge really, like we're talking about breakfast foods. And again, we don't we don't eat out very often. But there's this place here. It's called short stack. It is if I'm gonna get pancakes out that are not by any means. anywhere close to being low carb or low glycemic or anything at all. I mean, it's it's served with like this sweet mascarpone sort of like yumminess on the side with strawberries. They're probably the healthiest thing on this plane. But they're super they're they're like these Oat. They're oat pumpkin. Pancakes. Sweet potato pancakes. They are. They are the best pancake I have ever had. Honestly. In fact, after my my second son was born, the next morning they came in and they asked they're like, Well, what do you want? I'm like, oh, no, my husband's gone out. And he's

Scott Benner 47:21
so the guys bringing it in? Yeah.

Jennifer Smith, CDE 47:26
So, you know, splurge? Absolutely. I will.

Scott Benner 47:30
But, but but I like you telling the story because you splurge on pancakes. You're not at IHOP you're not like Yeah, right. Jenny made a face that you guys can see that said Oh god, no. So okay, so

Jennifer Smith, CDE 47:44
for people who are like I have I just Yeah, I wouldn't choose it.

Scott Benner 47:48
So So lunch today, what are you going to do?

Jennifer Smith, CDE 47:51
So lunch today is typically vegetables. I mean, I usually have some type of raw vegetables, cucumbers, bell peppers, tomatoes, carrots, and cabbage chopped up hummus. This time of the year I really like sauerkraut. Usually an apple or again some berries.

Scott Benner 48:20
What do you think? Carbs? I mean, I can try guessing.

Jennifer Smith, CDE 48:25
Yeah, my vegetables in the portion that I eat I count 10 grams for my portion of vegetables raw vegetable, they have about a cup and a half ish of raw vegetables. And the hummus I know because the labels right on the container with 11 grams of carb. And then my apple I weigh it because the apples we have are still from the orchard and we picked and so I mean the Apple could be really teeny tiny or could be like the ginormous huge. You could like softball sides, right? So I weigh it. But on on average my lunch is with the with the apple, probably somewhere between 28 and 35 grams of carb. Okay.

Scott Benner 49:12
Yeah. You don't consider yourself low carb at all right?

Jennifer Smith, CDE 49:15
I don't know. No, in fact, I'm not. I am not worried about I don't aim for a certain amount under carb amount to certainly eat. I also am not, you know, the opposite end high high carb either. I would say I'm more consistently my daily intake is probably somewhere between 80 grams, 7580 grams on the low end to maybe 110 to 120 grams on the high end. That's crazy.

Scott Benner 49:49
I mean, that's a lot more than than then I was imagining how long it's like. Yeah, sorry. That was more than I was imagining. So you got So close, I have a word written down here. As I started today, I'm like, I'm gonna get, I'm gonna see if Jenny says this word, right? You have not said it yet, but you got so close, I'm gonna go, I'll tell you what the end. Okay, I got so close, it's still might happen. So we'll say, okay, so middle of the day, your is kind of your lighter meal

Jennifer Smith, CDE 50:21
of middle of the day tends to be my lighter meal. Now that's on a week, day, weekends, especially Sundays will tend to be a little bit heavier probably on lunch. Mainly because, and I again, it's not necessarily a conscious effort, I just know from experience what I can get away with at certain times, right? So my weekday is tend to be you like lower impact type of meal mid day, because I'm most often while I have a desk treadmill, which is awesome. It's still real low pace. And otherwise, I'm just sitting or standing here. And some by mid day, even though I exercise in the morning, and still been sitting or standing around. Right and so I also I usually have a couple of hours of work to still do after my lunch. So I tend to do something that I know is going to be easier.

Scott Benner 51:22
So it's it's fair to say that you match where some people would match a meet with a wine you're matching a meal with your activity level.

Jennifer Smith, CDE 51:32
Yes, exactly. Like for Sunday's then these are usually my long run days. I go for a long run in the morning. And so the whole rest of the day I can kind of quote unquote get away with a little bit more because I've got just a much heightened much more heightened sensitive. kind of stay.

Scott Benner 51:54
Okay, all right. So what's for dinner tonight?

Jennifer Smith, CDE 51:59
Oh, you know dinner tonight. I haven't planned yet.

Scott Benner 52:02
That's dinner last night. I'll make it easier for

Jennifer Smith, CDE 52:05
ya. So dinner last night was a corn squash and like a mixed green vegetable kind of salad. I made a Caesar dressing to go on top of it. And then we had salmon.

Scott Benner 52:18
Okay. And the kids boom. Or you have young boys. Acorns their acorn squash cut in half in the oven. Little bit of olive oil, salt and pepper. That's that idea for that.

Jennifer Smith, CDE 52:29
Yeah, my boys like them. I do it with a little bit of like more savory seasoning on like a sage and kind of like a mixed season. My husband I like it that way. My boys really like it with cinnamon and a little bit of coconut oil on because it gives it a little bit of its a sweeter kind of flavor to it. So they like it that way but yeah, they they love they love the acorn squash the delicata my littlest. He really loves spaghetti squash. He thinks it's so fun that when you scrape it out that it looks like new Italy.

Scott Benner 53:04
Do you guys need any pasta?

Jennifer Smith, CDE 53:06
Yeah, we do. And the pasta that we typically eat is like the bonza type of pasta, the lentil or the chickpea type of pasta. The one that I really like, because it's the lowest impact is the Explore Asia brand. It's made either black bean or edamame a or I think they've got a green bean one. But I mean a really good like cup cup and a half cooked portion. It comes out once you kind of reduce it by the fiber amount. It's only like 10 or 11 grams of carb for a really big plate of pasta. So I will often do something like that on a weekday type of dinner where I'll give my kids the bonza Prost pasta, which got some good protein quality to it. I'll do the other one and just good marinara and a salad on the side. It's really nice complete meal.

Scott Benner 53:58
Okay, yeah, I was gonna say cuz you don't do any cream sauces, right?

Jennifer Smith, CDE 54:02
I don't do any cream sauces unless I make them myself more from like a vegan kind of approach. Like if I have a really good recipe that's got like a cashew nut, you sort of soak it in blended and puree it and make it into like a creamy kind of sauce. It's very tasty. You wouldn't couldn't imagine there's no dairy in it. But

Scott Benner 54:21
as you're talking, I'm thinking I am going to get notes where people say Jenny should write a cookbook with all of her recipes in it.

Jennifer Smith, CDE 54:28
I have been asked that. So why don't you put all the things that you eat together into this really nice cookbook and as like, if somebody could just keep notes for me? Sure.

Scott Benner 54:40
Let me ask you a question. If we're driving the Jenny families in the car, we're going to another state we're visiting people whatever we pull over on the side of the road everyone's hungry. Do you bring food with you? Or are you in a gas station going I guess I can eat this ring thing.

Jennifer Smith, CDE 54:58
I know I have to credit my Mom with this, whether it's made my life busier or not, I am definitely the parent that will pack. They pack things that I know, not only snackable depending on how long the trip is, but also if we're going to be on the road over a meal time. Because usually one I know that by the time you end up stopping someplace, you're usually over hungry. Yeah. Right. And then you're more likely going to make the Ring ding choice than something else. And so I packed I packed not only from my only my benefit in terms of driving and the sedentary nature and what that does to blood sugar. I know what the foods that I've packed do for me. And I can also we don't actually have to stop. I mean, not as much as

Scott Benner 55:55
we used to get a bathroom. That sounds like a great, that'd be fabulous. Yeah. It sounds like it would be fabulous. right until you realize that one of the people in the car was going number two while you were driving. Thank you. Maybe this isn't fabulous.

Jennifer Smith, CDE 56:09
Not a good idea.

Scott Benner 56:10
You have a couple more minutes or do you have to go? Oh, of course. Yes. Okay, so, snacks. I mean, I've we've said on here before it's funny. We kind of said when Arden was looking for different ice cream. You You pointed her towards oat milk ice cream, but she she loves now. Which is fascinating because before she tried, she didn't love real sweet stuff. Like if you know Arden she's Arden's not about like real sugary stuff. So she was like using the lenti at some point, like a brand and she's like, this is still too much. Like she's not the kind of kid who's gonna eat like Ben and Jerry's. You know, she might have a spoonful of it, but she's not going to go crazy. But when she when you told her about the oat milk ice cream, like that was a big deal for her. Oh, yeah, she loved it. So when you're snacking, this is kind of the lane you're in. I'm imagining. So I want you to just kind of throw out a few snacky things that you have around the house for yourself.

Jennifer Smith, CDE 57:07
nuts, nuts. That sound weird nuts.

Scott Benner 57:12
Nuts in your mouth. Jenny is your business.

Jennifer Smith, CDE 57:16
Yes, no, I like mix nuts. I think they're, they're great. Boiled eggs are really awesome. Some of the mug like sort of the mug cake or mug muffin kinds of recipes are pretty good. Actually found one the other day that's really super yummy. It's like a, it's like pumpkin pie in a mug without the crossed. Okay,

Scott Benner 57:38
it is brand thing or you made it yourself.

Jennifer Smith, CDE 57:41
Oh, you make it yourself. It's like pumpkin pumpkin puree, like out of a can not up not the pie stuff, the stuff without sugar added to it. And it's an egg, some baking powder, some vanilla extract, and a no sugar sweetener of your choice. Like I just use the vanilla stevia to sweeten it. A pinch of salt. And I think that's it and then you literally like mix it all up in the mug and you put it in the microwave for three minutes. It is it's so yummy. It's like it all the carb that's in there is the portion of pumpkin pie that you put in comes to eight grams of carb.

Scott Benner 58:19
All right, I'm gonna ask you to send me that when I'm gonna try that. I want to try. Okay, good for ya. Because, like, for instance, if we've just got past Halloween here, there's no bowl of candy corn in your house. Is that right?

Jennifer Smith, CDE 58:34
There's no bowl of candy corn, there's no bowl of candy. We just don't. Not from my perspective, because I I'm an adult decisionwise I can choose or not choose right. But I just don't think it's necessary to have that as a potential option. I mean, if you really want to go into also why we don't have any Halloween candy despite it not being very long ago and our kids having come home with like four buckets full of of Halloween candy. Our children got to pick five pieces that were chocolate. Not the like sugar, you know, sugar stuff. I mean, not that the chocolate doesn't have sugar but and then I paid them to give me their candy, which they were all excited. I was like these are your options. You're not eating all this candy. That's just how it is. It's going out of the house but if you willingly give us then I will pay you each this amount of money and you can use it as you like for something you want. Where did the candy go? Oh, the candy went. My husband plays soccer. So he took it to the soccer field for one of his games and he just left it there. Okay. We brought like the Rubbermaid just like plastic things and we put it in a couple of them and we left them on the tables there and they're adults, they can make a choice right

Scott Benner 1:00:00
sec. Okay, so a lot of this really is then about options in front of you. Yes, like you, there's no way for you to have a bad day, I'm making quotes and put my fingers in your house. Like you can't you couldn't get up today and just be like, I'm gonna go find some sugary candy that doesn't exist in the house. I'm gonna like, that stuff's just not there. Right? I could

Jennifer Smith, CDE 1:00:23
choose to over eat some of the things that are here. Absolutely. I mean, if I chose to eight, chose to eat, you know, eight apples in a row. Clearly that bad day

Scott Benner 1:00:34
impact. So let me ask you this question. If I picked you up, and took you to someone else's life, where today you got up in the morning, and had a bowl of cereal, and at lunch, you had a sandwich on bread, and there were potato chips with it. And it dinner? I don't know what you have like that. Could you Bolus for all that for your body? Do you think?

Jennifer Smith, CDE 1:00:55
Having enough experience? I could? Yes. Yeah. I mean, I could, I could figure it out. Obviously, just having hindsight from having stuff like that in the past. I mean, we've had, you know, family gatherings and whatnot, which I haven't obviously put all of the work into all of the food that comes to something like that. So I do have to make choices. And certainly will I indulge? Absolutely. At certain points in time? I don't make it regular though, right. It's like, what's in our house and what I choose to eat, and what I choose to kind of prepare and what not for our family is like 80 to 90% of that is its fuel, it's what should be going in to my body. And I can tell a difference in how I feel, depending on what I eat not only blood sugar wise, just in general, you know?

Scott Benner 1:01:46
I'm guessing on to the in between meals, you're not overly hungry, right? No, no. Okay, I'm not weird carved desires and stuff like that, because you haven't been eating that stuff to begin with that kind of sugary stuff that wires your brain to say, like, go get more

Jennifer Smith, CDE 1:02:02
true. I mean, at times when I do want something like chocolate again, I do more like real dark chocolate is absolutely like my favorite. So but I don't eat again, it might be here, but I'm not eating the whole entire bar or 20 pieces of it. I just don't need that. And the one little piece that I do eat might have, for me, you know, something like three or four grams of carb. I don't even have to Bolus for that. I mean, it is what it is. Somebody else may have to obviously cover and considerate, but

Scott Benner 1:02:35
sound work that way. So two more questions for you. My first one is that through your life, you haven't, I'm assuming had to worry much about your weight, like your body style stayed fairly consistent.

Jennifer Smith, CDE 1:02:47
It has, I would say that the time period that I probably gained the most, which is not odd, I'm quite sure you can guess it was in college. I mean, it just was right. My activity level change even though as we're walking around campus and playing like rec volleyball, it still was just very different. I think that this shift in your sleep schedule, and I'm sure the french fries didn't help me.

Scott Benner 1:03:14
Tries just tape them right on your thighs, don't even yourself. But I

Jennifer Smith, CDE 1:03:18
think outside of that, no. And that's certainly while I work to stay healthy. I haven't thankfully been somebody who has struggled with weight, right? And whether it's because I've just paid attention to what my body wants, and I feed it. And I do good things with what I'm feeding it. I also learned pretty early on because of because the manner of instruction that I started with when I was first diagnosed was very tied to portion. Yeah, it was this amount is this much. This is why you need it. And again, today, not a lot of portion is really taught outside of just how many grams of carbs in the portion, right?

Scott Benner 1:04:04
I can't tell you like I clearly don't eat as well as you do. But how often I see things people are eating. And I think it's like how do you eat all that? Like, I don't understand how you can like, like, physically the amount, even with liquids. One of the reasons I don't think I drink is because when I see somebody drink three or four beers and like, I couldn't drink three or four cups of water like that, like how are you doing that? You know, I'm impressed by it. Honestly, I'm like, how do you get that in? I can't do it. So yeah, so my last question to you is, obviously with what you do for a living. You're helping people who eat in all varied ways. Even though you and I don't really ever talk about it. I assume we're like minded and as much as that I just want people to know how to use the insulin for what they're eating. Like I'm not I'm I'm not here telling anybody how to eat like I know. I don't imagine that's the thing you could do for A for a stranger through a podcast one way or the other. So. So then, do you feel like, like, are you almost like a video game character with your, your understanding of diabetes like these are like, I'm imagining a spinning dial on you and I hit D and the dial pops up. And I spin it around to like high carb, low carb, vegetarian, like, and you're like, Oh, I know how to think like this. Do you think of it that way? Like, when you get a person on the phone, you don't I'm saying?

Jennifer Smith, CDE 1:05:30
Yeah, no, that's absolutely, because I think I've worked with so many different fueling plans, if you will, right. And it's great that you bring in, you know, we're not really about talking, you should always be eating this one way, the idea is really just navigating management. And that's how I approach any new person that I work with, right? You have these options, this is likely to potentially be a little bit easier if we swip swap do this versus this or a little bit more of this a little bit less of that kind of thing. But everybody has an eating style. And it's my job to help you. If that's really what you want to keep doing great, then we need to figure out how to navigate that and make sure you know your glucose is staying where you want it to stay and your insulin is well managed or your other meds are well managed. So that's, I guess that's an interesting like, spin the dial and it comes up this person wants to be vegan. So then my brain sort of Yes, absolutely. It sort of navigates into like my vegan train of thought like, what, what do I have to consider? Where are you getting your nutrients from? Are you getting enough of these vitamins and whatnot? Absolutely.

Scott Benner 1:06:39
I mean, I think that a lot of my skill comes from the fact that we mix and match so many different kinds of food styles at the same time. Like Like, that's where my that's when I see a food I'm like, well, that's a slow impacting carbon. That's a quick impact the I think that's why I'm good at Chinese food and things like that, because I don't look at it as I don't know I don't look at general, the general chicken and think Oh, general chicken, I think sauce. Deep fried breading you you're breaking it down. Yeah, in my mind. I break it down into different thoughts. So it's, I mean, in my mind, if you're eating generals chicken as an example, you're eating four different things. 3d, you're eating protein breading fat, and sugar. Like that's, that's how it seems to me. I don't think of it as chicken. I know that if you put like rice on top of it, I think okay, well, if this is white rice, it's one thing if it's fried rice, it's different. You know, like, I don't know, like, it just that just makes sense to me. But if Arden ate more like you, like say Arden just came out of the womb, like I'm gonna say the word that you didn't say, Jenny, I'm so let down. You didn't say this word. Oh, that was a quinoa.

Jennifer Smith, CDE 1:07:50
Do you want me to say quinoa? I

Scott Benner 1:07:52
was just say kimchi.

Jennifer Smith, CDE 1:07:54
Kimchi. Oh my gosh, I love kimchi. I can't show you when I commented about sauerkraut before I'm

Scott Benner 1:08:02
that's I haven't written right here. So I wrote down kimchi when we started. And when you said sauerkraut, I wrote down sauerkraut. She got so close.

Jennifer Smith, CDE 1:08:11
Oh, I'm so sorry. Yeah, we have. It's funny because we've got friends around the corner from us. That are our little boys are the same age and are in school together. And they make kimchi and it's it's so good. Like, so so good. My mom who makes sauerkraut, which is probably the reason that we've got a lot of it right now because we just

Scott Benner 1:08:32
that sounds good. I love sauerkraut. I've never had kimchi. Although I was in a store the other day, I saw a jar. And I thought if I didn't know, Jenny, it would look to me like somebody threw a handful of grass and weeds in this jar. But instead I know what.

Jennifer Smith, CDE 1:08:48
Oh, good. I'm so glad that I provided some education.

Scott Benner 1:08:50
Well, not only that, you know, I'll tell you this before I let you go. I saw someone online the other day, who said I had a banana but it was overripe. So I had to Bolus more for it. And I thought she knows that from the podcast. And she knows that from Jenny. And I was very proud of that. Like I really was I was like oh, this is wonderful. So that's super awesome. I appreciate you sharing with us with all this how you eat this is gonna go into the how we eat category.

Jennifer Smith, CDE 1:09:18
Fantastic. I'm sure there are things that I don't even know if I missed saying anything. I don't know. I

Scott Benner 1:09:23
mean, no, but I think the important thing about the conversation is it's a vibe, right like here's what I didn't hear you say I didn't hear you telling me that you eat anything deep fried. I didn't hear you very rare. Yeah right. I didn't hear you tell me that you have processed sugar. I didn't hear like you know that kind of stuff like that's the you know, I didn't hear you telling me I eat like this unless I ended up you know at the store and then all bets are off or something like that. You know you I heard you tell me how you eat when you get away from your house. I heard you told me that you don't go to a lot of restaurants. See, that's how I mean, this is how you eat. You know what I mean? Like, it doesn't fit into a category. You're not low carb, you're not flexitarian you're not, you know,

Jennifer Smith, CDE 1:10:10
I don't write i, this is like Jenny's fuel plan. follow you, right? I don't fall into a category. I mean, if we go out to eat, we've we've picked some places that both Nathan and I have decided are just, they're really good options. You know, I mean, there's a place here that it's a really good like, salad place that's got really good quality, super awesome stuff that you can that our boys even love. Like they love to make their build their own salad from the options. And so those are more the places that we will often go.

Scott Benner 1:10:47
I didn't hear a lot, a lot, a lot of white flour. Like that sounds like something you don't get.

Jennifer Smith, CDE 1:10:53
I don't know. In fact, I think the last time I had white flour was probably sourdough bread this past summer that we had when we were we had gone to see Nathan's dad and his stepmother, and she made some good homemade sourdough. And I was like, Can I have a piece of that? Yeah, that sounds no good. I'd like that. Yes, that sounds

Scott Benner 1:11:17
good. Yeah, I listen, I made chocolate chip cookies the other day that are just kind of sitting downstairs. And I realized that as a, as a younger person, if somebody would have made a batch of chocolate chip cookies, I probably would have eaten lunch every time I walked past that. And I don't feel like that anymore. And I don't know if that's because I'm older, or if it's because I don't eat as much of that to begin with anymore. And so I'm not drawn to it the way I was like, There's part of me that thinks that I didn't have a chance. I woke up on Monday morning, I ate a bowl of sugary cereal. And that drove my desire throughout the day. Nobody made a meal to send with me somewhere. So even as an at 19 or 20 year old out of, you know, out of high school and on my way to work, I'd stop it like a store and grab, by the way what I could afford, which was never quality either. You know, like so there's, and then you're sort of, I don't know, like, it's like you're trapped in a in a hurricane that at that point that you just kind of can't break out of the walls of anymore. Like this is the world like my body desires this sugar, and flour, because this is what I can afford to eat. Even if I get afford more because when I got older and we could afford more, I didn't know what to do. Right? You don't I mean, I wasn't like, oh, we have some money now. I'll go buy good things. I didn't know what good things were versus bad things. No one even thought about it that that? Yeah. So I don't know. It was interesting to hear your path through all this. Your parents or your body style ish?

Jennifer Smith, CDE 1:12:53
Um, my dad was more. He was more the exercise. person in our house. Definitely. I mean, he's the one that got me interested in biking. My mom, now older is a little issues heavier than she was growing up. But yeah, I mean, in terms of body size, I don't have tall parents. And I didn't have extremely big parents by any means.

Scott Benner 1:13:27
It was my situation where I, when I'm with my children, people don't think they're my kids. Like we were able to do the thing that you were worried about, to some degree, like we were able to take our kids and like lift them out of the swamp that we grew up in, and kind of throw them up on the shore. And we're like, I mean, they still eat things that I wish they didn't eat. And I and I know that's because we eat those things like or that they brought around the house when they were younger before we wrapped our head around completely, you know, but for the most part, I mean, on any baseball field, or softball field I've ever been on, when people come up to you and they're meeting you and they're like, is that your kid? People always like point to the I don't know how to say this. Like the fattest kid on the team know if that's your kid there. And I'm like, I'm like no, my son's that. Gizelle and centerfield. And then they're like, Oh, I know your wife slept with the mailman. I understand that Kelly said all the time, people would come up to her at a softball game and point to the catcher and say is that your daughter? And Kelly be like, No, that's my skinny girl at third base. Are you there? Yeah. And so like that, but you match like if you stood with your family you guys all look at the reason I'm bringing

Jennifer Smith, CDE 1:14:43
we would look much more visibly, I guess facially much more similar than body type like my I got the short jeans in the family. I did. I mean my brother's like six to

Scott Benner 1:14:57
I'd love to like, Yeah,

Jennifer Smith, CDE 1:14:59
I'm like, you know Five, three, I didn't get the tall jeans.

Scott Benner 1:15:03
I just think that what I'm hearing from your story is that your mother was willing to cook and do a good job of that, and your father was active. And you kind of took those two things and blended them together. And I'm gonna guess that you ended up in nutrition or health care, which I think of being a nutritionist as healthcare, because you had diabetes, right? Like you probably grew up with people taking care of you that you I mean, I hear it all the time. So

Jennifer Smith, CDE 1:15:30
I did it became an interest after after I realized what a what I thought was a really good job that my dietitian, especially diabetes educator, like, I never felt like I couldn't do something. After I was diagnosed, like I never I've never had this. Well, God, I like this has just been so horrible my whole entire life. I mean, would I give it away? If somebody was like, Here? Take this pill and you don't have to? I'd be like, Sure. Give me the pill. Tomorrow or, you know what a ring the I don't think it's like a doughnut, right?

Scott Benner 1:16:12
It's, I don't know what it is. It's chocolate with chocolate cake with like white cream and chocolate icing around the outside. Okay, there

Jennifer Smith, CDE 1:16:18
you go. Yes. I'm assuming you would take a bite.

Scott Benner 1:16:21
You'd go. Oh my God, that's insane. And then you would never eat. I'm at the point. Now, by the way, were processed foods. Tastes plasticky to me. Yeah. But when I was growing up, I didn't know the difference between them. Sure. I thought that was sweet. And now I'm like, This isn't good. You know? Or if you get if you took me to McDonald's, for example, I understand what a McDonald's cheeseburger tastes like. But I don't match that in my I haven't had a McDonald's cheeseburger in a really long time. But if I had one, like, I know what I think it tastes like right now in my head. But if you asked me what a McDonald's cheeseburger tastes like, I would tell you that it tastes like a McDonald's cheeseburger. Not like that, like a cheeseburger. Yeah. So I didn't have that. I didn't have those measurements in my head when I was younger. I thought that's what a cheeseburger was. Sure, yeah, yeah.

Jennifer Smith, CDE 1:17:10
There was always a like, I can probably count on two hands. The number of times as a kid we went to like McDonald's or Hardee's was like card theme. You know, but I don't even think that I've ever had a McDonald's cheeseburger. Because I didn't I didn't like I always chose the fish was the fillet of fish. It's called fillet

Scott Benner 1:17:31
o fish, I believe fillet o fish, Diego. I would tell you that I haven't had one in years, except once. And it was like six months ago. And Arden and I were out late. She had a bit of blood sugar. That wouldn't like it just wouldn't break. And when we finally got it to break, and she had missed dinner, and everything was gone. And it was like midnight. And I was like Arden. Like we are going Yeah. And so we sat like, like to giddy children in the dry like outside the drive thru like EDA. God, this is terrible. And it was, but it was really good. And it was terrible at the same time. And so I don't know, it was just something. All right, I appreciate you doing this with me very much. Thanks for asking. Everything you need to know about Jenny was just in the inflection and her voice when I said thanks for doing this with me. And she said of course. Thanks for asking. That's who Jenny is. She's delightful. Let's thank Jenny of course and remind you that she works at integrated diabetes.com. If you'd like to hire her, you can also want to thank Omni pod makers of the Omni pod dash and the Omni pod five and remind you to go to Omni pod.com forward slash juice box Do not delay go now. Find out if you're eligible for that free 30 day supply of the Omni pod dash. I'd also like to thank my other sponsor in pen from Medtronic diabetes and remind you to head over to Impend today.com Ford slash juice box alright everybody, that's it. I am time shot. I gotta be honest with you. I haven't felt well in weeks. And this took a lot out of me. But I'm happy happy happy that you're here with me. And I will not die I promise. Even though it is trying to kill me. First the COVID then I got rid of the COVID then bronchitis then I got rid of the bronchitis. Now, I don't even know what this is. This just seems cruel at this point. But uh, I will not be I will not be thwarted. I am a little woozy. And I'm hot. But I won't I will not be third party. Sorry. I will not be the word. I will make this podcast. It will I will not be stopped. I want to feel better so badly and get this. I'm not nearly as sick as my wife. That poor girl. She's told me Stover, you know what I mean? Like, she's beat up. It's crazy. As soon as I feel better, and I mean, as soon as I feel better, I got to start doing the setups because I need somebody to take care of these kids. And you don't I mean, it's not looking good. You guys can hear the sarcasm, right? I mean, she's really sick, but I don't think she's gonna pass. But seriously, really, really sick. If you've been ill with all this. You have my you have my compassion. All right, everybody. Here I go watch this. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. I got it when I need it.


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#705 Episode Full of Grace

Scott Benner

Grace has type 2 diabetes... or does she?

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 705 of the Juicebox Podcast.

On today's program, grace is with me, she is shining light on the Facebook page. And her episode is a great look into what a diagnosis can look like when the doctors aren't quite sure what's happening. So we're going to hear Grace's story. And at the end, I'm going to tell you what grace just told me the other day. So this is many months after it's been recorded, and grace has some answers. I'll share with you what she's learned. Also, Grace has a really weird job, in my opinion, and somehow it's oddly connected to an episode a couple of days ago, but not really anyway, you'll see. While you're listening today, remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. Becoming bold with insulin, we're doing what grace does for a living. Where do you find out?

This episode of The Juicebox Podcast is sponsored by Dexcom and Dexcom makes the Dexcom G six continuous glucose monitor, you may be eligible for a free 10 day trial of the G six and you can find out@dexcom.com forward slash juicebox. Today's episode is also sponsored by in pen from Medtronic diabetes, would you like an insulin pen that does more than regular insulin pens? Well, if you do, then you want the in pen from Medtronic diabetes in Penn today.com. That's where you go to find out more. Don't forget to take that survey AT T one D exchange.org. Forward slash juicebox. All you have to be is a US resident who has type one, or is the caregiver of someone with type 110 minutes later, you'll be done with a survey. And you will have helped people with type one diabetes and supported the Juicebox Podcast.

Grace 2:29
Hi, I'm Grace, and I'm a type two diabetic as far as I know. And I'm an adopted mom, colon hydrotherapist. And I'm here to talk about poop.

Scott Benner 2:41
Nice. I'm only excited because no one's ever started off an episode like that. Well, let's, let's figure out a few things first, how old are you? 58. What do you mean, you think you're type two?

Grace 2:59
Well, I'm not making what's the word? I want to say? I'm I'm not making very much insulin. Okay. So I'm at the low end of a C peptide.

Scott Benner 3:15
And so you've had a C peptide test?

Grace 3:18
Yes. It was like 1.2 1.1 to one point, something like that. But I don't know if I'm Modi or not. I did do I paid for it myself because my endo didn't want to. She didn't see any point in me taking an antibody test. So I went paid for that myself and I do not have the antibodies. And then I tried to look into Modi testing. And from what I could see. It's like $2,500. And so

Scott Benner 3:50
I'm already confused. Hold on a second. So your doctor wouldn't just send you for a test.

Grace 3:56
No, she didn't see any point. She's like you either need insulin or you not. Oh, and I think that they're just, you know, I'm older. I've had it for a while. So I think she's just you know, in her head, she's pretty clear that that's what I am.

Scott Benner 4:14
A low level of C peptide can mean your body isn't making enough insulin and may be a sign of one of the following conditions type one diabetes, Addison's disease, liver disease, a high level of C peptide can mean your body's making too much insulin, it may be a sign of type two diabetes, insulin resistance, Cushing syndrome or a tumor on your pancreas. And where was yours at?

Grace 4:37
1.12 I believe it's right at the low end at the low end. Yeah, cuz I think like a point eight is type one from the test range that I had. Oh,

Scott Benner 4:48
yeah, I'm looking. I'm trying to find out right now. To see. Okay, so you took the test had a low range, but doesn't that More indicate type one and type two. I mean,

Grace 5:05
I would think,

Scott Benner 5:07
all right, second

minus ad thresholds denoted by Oh, I don't understand all this enough to talk about it threshold with fasting blood shoot really should be considered above 80 and below 250. Type Two diabetes over 250 under ad type one. Moody unlikely under ad and what was your skim?

Grace 5:41
1.12?

Scott Benner 5:43
Okay, so in our intermediate insulin secretion, is that level? If I'm reading this correctly, almost I don't know eight. All right, so hold on, we have to start over 1.12 Is that were you fasting?

Grace 6:04
Um, I don't think so. I don't, I don't really recall.

Scott Benner 6:09
Okay, so if you're not fasting, it changes. Under point two, type one. I think I'm reading this, right. This is this is why this is also confusing. And your doctor won't help you figure out more, whether you're type two or moody and he, the doctor just says it doesn't matter.

Grace 6:31
Yeah, just basically, if you need insulin, you need insulin. So what the deal was, is that for the last couple of years, because I was diagnosed like 30 years ago with type two, so for the last couple of years, I was at the point where I could only eat once a day, without my sugars going into the foreign five hundreds, okay, so that I was eating once a day, and trying to restrict my food to keep myself from having to go to the ER fees. And so the last endo never tested even never even did a C peptide. And so, that should at least she did, and that's why I got put on insulin. Okay.

Scott Benner 7:18
So you're for you're being treated as a type two, you're using insulin at meals and you're wearing a pump, right. Okay, so your so your, what's your Basal rate?

Grace 7:31
I've got four of them. And hang on, I will tell you, okay. One moment, please. From midnight to 6am, and 1.9, and from 6am to noon on 1.3 to 4.5. And then four to midnight, and point eight.

Scott Benner 7:58
Interesting, it's very interesting. I don't know why it's interesting, but I'm incredibly interested by it. And so, because I've never spoken to a type two who uses an insulin pump before?

Grace 8:09
Well, isn't that interesting? It is. Can I tell you how I got the pump?

Scott Benner 8:13
I mean, did you buy it legally, I hope? Oh, yeah, I

Grace 8:16
did. I didn't even know what a pump was, what it did, how it would be beneficial. And I started listening to the podcast, and you're like, you know, omnipod.com/juice box or whatever. And so I just did that. And then the next time I went to my doctor, she's like, I got your insulin pump. Like they sent me the demo. And I was like, I don't know if I want this or not or whatever. But Omni pod in my case. Like when I filled out the information, got in touch with my doctor, it all went through my insurance. Everything was approved. I went into a follow up with my doctor and she said, Well, your pumps ready. I'm calling it in, and I'm like, I didn't even know I was going to do it. That how

Scott Benner 8:58
magical my Lincoln. Yeah. Well, and you could have said, I mean, I'm assuming at that point, you could have just said I'd really don't want this if you didn't want it and that would have been fine, too.

Grace 9:09
Yeah, but it was intriguing, you know, because I had been listening to podcasts for a while.

Scott Benner 9:13
So you want to give it a shot? Yeah. Alright, so I'm sorry. Tell me again. How long have you had type two?

Grace 9:20
I was diagnosed. To the best of my recollection. I was diagnosed in my early 30s. And the year after the Oklahoma City bombing, I was in that. And so I don't know if like the trauma from that had anything to do with it. I gained 100 pounds in the year after the bombing. And I was diagnosed at the same time with type two and hypothyroid

Scott Benner 9:51
were you incredibly impacted by the bombing?

Grace 9:55
Yeah, I was. I was not in the Murrah Building, but I was like as the crow flies a block away,

Scott Benner 10:02
okay, did you Would you consider you had like traumatic impact from it?

Grace 10:07
Oh, yeah. Yeah,

Scott Benner 10:12
I gotcha. Well, that would be something, wouldn't it? But you also found out you had hypothyroidism? Where was that then being treated?

Grace 10:20
No, I found out at the same time that I was diabetic and had hypothyroid. But did

Scott Benner 10:25
they give you a thyroid medication? Yeah. How well did that treatment go? Did you have results that were reduced your your?

Grace 10:37
Oh, that was a kind of like your wife. That was a many year long fight. And I don't feel that I was. So I'm 58 now and that's when I was 32. Ish. And I want to say that my thyroid was not optimized until probably around 2017.

Scott Benner 11:02
Wow. Because I just looked up that bombing happened in 95. So it took 22 years to get your thyroid straight. Have you considered going to different doctors?

Grace 11:13
I have been to different doctors. This is probably my third or fourth. Endo.

Scott Benner 11:19
Interesting. Interesting. The endo is handling the thyroid.

Grace 11:25
Yeah, now well, they have been Yeah.

Scott Benner 11:27
Okay. And is your TSH, lower now? What is it now? You know?

Grace 11:34
I could look it up, I want to say it's probably around a one or two. But there's a big difference. I was like, consider myself self a thyroid patient advocate for a lot of years because I was so angry about all of it. But I want to say it's between a one and a two. But there's a definite difference when like being in range, obviously doesn't mean anything. But when you feel optimized? You can you can feel it.

Scott Benner 12:05
Yeah. Do you have any hot or cold tolerance problems?

Grace 12:09
I'm not really I have like a little bit of cold tolerance, but it's not from the thyroid because I have neuropathy in my leg. Oh, so I have it from that.

Scott Benner 12:19
Gotcha. When did you start managing with insulin? Just recently,

Grace 12:23
a year ago? I think it was on November 13 of last year.

Scott Benner 12:28
How long? You've been listening to podcast?

Grace 12:30
Since about that time. Right? Okay.

Scott Benner 12:33
So the podcast made sense to you and you started changing things or?

Grace 12:39
Yeah, I somebody I was in a different Facebook group. And somebody just mentioned Juicebox Podcast as I was like scrolling through I saw it. And I was like, it was one of those people that like, how do I even listen to a podcast? Like where is that? How do I get it? You know? And I figured it out and been listening pretty much since the beginning of since I started being on insulin.

Scott Benner 13:03
I think it's pretty impressive that you learned how to listen to a podcast considering before we started recording, you didn't think to turn up the volume when you couldn't hear me. It's a pretty impressive story now. It is in context. Well, okay.

Grace 13:20
Oh my gosh, so.

Scott Benner 13:21
So prior to a year ago, what was your one say?

Grace 13:27
I've had the ones that I can remember, I'm so mad because we just moved a year ago. And my old I keep everything not like a hoarder. But I have this one box that has all my taxes in it from the first time I ever started working when I was 18. All my lab results from the first time that I couldn't remember collecting lab results. And that got thrown away. So that was a little frustrating. But from what I can remember, I had a onesies that were like six, five, this is in the last five years 657585 10 Four when I was diagnosed, but back in the 2000s, early 2000s. I can remember when I was allowed to test my blood sugar that it was in the three and four hundreds.

Scott Benner 14:21
Was it does it sound like to me? I mean, does it it sounds like to me I'm wondering if you think the same like over the last five years, things were progressively deteriorating.

Grace 14:30
Things were progressively deteriorating. And I don't know if this has anything to do with it or not. I've been kind of researching. But in 2013, my husband at the time committed suicide. And so after that experience, I started experiencing a lot of things the the thirst like really Intense muscle cramps. And I, you know, I didn't really think anything about it at the time. But looking back now, I feel like that was like probably a hit to my body as well. So I don't know, do you have

Scott Benner 15:16
any other autoimmune issues?

Grace 15:20
No. And I really don't know a whole lot about my family. My sister had thyroid issues, she had nodules, and she had half of her thyroid, one side of her thyroid removed when she was 18. And the other half of the other side remove and she was 21. And other than that, the only thing that my family that I'm aware of that may possibly be autoimmune is that there is Alzheimer's on my mom's side.

Scott Benner 15:48
Okay. But you think that two big traumatic events might have kicked two of your problems in may be maybe, or at least the timing anecdotally lines up? Yeah, yeah. But you don't? Do you think you have type two diabetes?

Grace 16:09
I really don't know. I find it odd. It's not a common thing that I'm aware of. And I haven't really looked into it that much that people like, get type two, and then their pancreas is burnout, and they need to be on insulin, because a lot of times from what I'm reading is that they're so insulin resistant, and they're making a lot of their bodies producing a lot of insulin, but they can't use it. And so they get on insulin, but that's not the case with

Scott Benner 16:37
me. Yeah, you're just confusing. I'm hoping that by being on somebody might hear this and, and reach out to you.

Grace 16:45
Yeah, every doctor says I'm a complicated case. Yeah, that sounds

Scott Benner 16:49
to me like they don't know what they're doing. Yeah. I think somebody who understood it wouldn't find it complicated at all. Yeah. Oklahoma.

Grace 16:58
I don't know. I just talked like I am. From California, and I was in Oklahoma for 24 years and I'm in Wisconsin,

Scott Benner 17:07
Wisconsin. No kidding. A my brother's here right now. He just flew here from Wisconsin like 36 hours ago. Say bring your deer. He did not bring anything.

Grace 17:20
I'm alignment kugels. He's a boy. He

Scott Benner 17:22
flies very light. He barely comes with the clothes he's wearing. Okay. Why did you want to be on the podcast?

Grace 17:33
Well, I wanted to talk about what I never hear other people talk about, which is what I refer to as the other side of gastroparesis, because when you have slow motility, and you have trouble eating and what have you, for many people that also translate to slow transit of the colon, and then people have trouble going to the bathroom.

Scott Benner 17:59
So you have gastroparesis? How long have you had that?

Grace 18:03
I was diagnosed with that in 2004.

Scott Benner 18:09
How did it present?

Grace 18:11
It presented were all of a sudden, I could not eat and I started throwing up anything that I ate. And it was to a point where even if I tried to just like eat yogurt, and nothing else, like I was trying to find like was there one food that I could eat that I wouldn't throw up? And even if I tried to eat a little bit of yogurt or whatever, I would just throw up everything I ate.

Scott Benner 18:41
Okay? top line, gastroparesis is also called delayed gastric emptying. It's a medical disorder consisting of weak muscular contractions of the stomach, resulting in food and liquid remaining in the stomach for a prolonged period of time stomach contents, thus, exit more slowly into the duodenum of the digestive track. Anyone who just heard me say duodenum correctly. You're gonna want to thank Grey's Anatomy I don't know what it is. I just not to say it. And, and that happens to people with diabetes because of its like neuropathy almost just happening in your stomach. Yeah. Of the

Grace 19:22
vagus nerve.

Scott Benner 19:23
Yeah. Okay. Did you manage your type two at all for the years prior to all of this? How did you take care of it?

Grace 19:35
Here's the deal is that like, a lot of people I hear on the podcast, I didn't get any information like somebody gave me a picture of a plate. Like I think this was right around the same time that they very first came out with nutrition labels on food. And so they were big about the quote unquote the plate of food and You know, just the same picture that they still show today that looks like, you know, a five year old could understand it right? And so, that's about all the information that I got. And I did get test strips and stuff on occasion. But there's, for type two in my case, there was no quote unquote, management it was, you have diabetes, take a pill. And to me, it'd be like the same thing. Like you have hypothyroid take a pill or you have high blood pressure, take a pill, and that's that. There's, there was no focus. What's your blood sugar doing? How often are you getting high? Whatever, it was just like, you know, eat right and exercise and take this pill. And and that's that, I think.

Scott Benner 20:52
How long did you do that? For?

Grace 20:57
Good Lord, the math.

Scott Benner 21:00
Like decades?

Grace 21:02
Yeah, like three?

Scott Benner 21:04
And when you say eat, right, what did that mean to you?

Grace 21:09
Um, I just tried to eat quote, unquote, healthy, normal, get your vegetables in normal, just regular everyday stuff.

Scott Benner 21:19
I'm trying to figure out what that means to most people. Like, if, if I said, you get your vegetables in, and then you said, Oh, I can eat brussel sprouts, if I sprinkle brown sugar on top of them. And then, you know, like, that's how some people think of vegetables sometimes, like They load them up with. They just make them delivery systems for other stuff.

Grace 21:40
It has. It's been i Sorry, I didn't mean to interrupt you. Go

Scott Benner 21:43
ahead. No, I was gonna say is it's it's a very similar thing to when people talk about their blood sugar ranges. And they'll say, Well, I got I got low, so I ate something. And they think that their interpretation of low is everyone's interpretation of low. And they believe that means that that's the correct interpretation as well. But I still hear people talking about how they treat their blood sugar's at 100. Right? I was at 100. And I needed to get up, I'm like, Oh, I think you need to get it down still, but okay. Right. You know, and so there's this, this disconnect between what people mean, and how they present what they're saying, you know, I, I ate well, but if we kept talking, what I find out that that meant that when you went to McDonald's, you got the chicken, like,

Grace 22:29
at that time, possibly, but it's my food has fluctuated so much over the years. So, when you're first diagnosed, or when I was first diagnosed with diabetes, like, I never had to watch anything I did before ever, right? So then you just kind of start learning and you know, be the best you can at certain times, whatever, try to, quote unquote, eat whatever was healthy at the time, which has gone through different things. I mean, back then it was like a low fat thing, whatever. And so over the years, and I don't really remember them coming back to me and telling me you need to try harder, you need to try harder, you need to try harder or anything like that. So you feel

Scott Benner 23:16
hard me? How did you feel physically? Did you feel okay? Or did you did you live a life where you felt like malaise and tired and stuff like that?

Grace 23:27
Um, I feel like the malaise and tired thing and that might have been kind of the thyroid thing, because it's felt like there was a big onset. I felt really terrible. Like I felt kind of normal. It right before the bombing and that year after like gaining 100 pounds in a year, and not knowing where it's coming from or why it's happening.

Scott Benner 23:51
That really sounds like your thyroid. Yeah, that I'm sure that it was. Did you significantly change your activity or eating life? No, yeah, that sounds like the fire right to me.

Grace 24:02
Yeah, I wasn't doing anything any different. So obviously 100 pounds on your frame makes you feel you know, horrible in a lot of different ways earlier,

Scott Benner 24:11
you 15 feet tall. It probably wouldn't be good for you. Wow, that's crazy. I don't think I've ever popped my lips before on the podcast, but I just did it just now. I went wow. Wow, I have you lost the weight since then.

Grace 24:30
Um, it's gone. It's gone back and forth. I've since then, I had lost 125 pounds. And the last 50 of that was because I got sick and was throwing up my food, right. And then right after I lost that 125 pounds, and I was down to like 125 And I got to keep that off for about three months. And I guess because of the weight loss and they were trying to figure out what I was throwing up and everything was before the gastroparesis diagnosis. They decided in their infinite wisdom that I had adrenal failure, okay, because I was losing my hair and stuff because I was losing the weight so fast. So they put me on cortisone pills and told me that I needed to stay on them for the rest of my life where I would die. But I didn't find out till two years later, I think it was that the doctor never even did the proper test to determine that I had Corazon failure. And so I was taking it when I didn't need it. And that put 80 pounds on me gave me drug induced Cushing syndrome, and put 80 pounds on me within like six months. And that's, that's a hard deal to get off of. Yeah, great. So yeah, that's not fun.

Scott Benner 25:54
Wow, you you have run into a number of doctors that haven't helped you along the way. That's terrible. Okay.

Grace 26:05
All right. It wasn't the most compliant patient because of that for a long time.

Scott Benner 26:09
Tell me about that. You mean, did you notice that they weren't valuable to you? And then that didn't make you listen?

Grace 26:14
Well, especially the thyroid doctors, because I felt like that was a big injury with the, with the being on the cortisone and stuff, there was a whole host of problems that came along with that. And so when I would go to a new thyroid doctor, and they didn't want to do like the full battery of test or what have you, I was just like, angry walking in the door, you know, ready to go out? I've had doctors tell me if you're not going to take Synthroid. And that's what I'm going to give you that I don't even want you as a patient. And so I've just like, had to walk out the door before. And so you know, it's it's a frustration,

Scott Benner 26:55
I tried to tell people that that that lovely woman that I had on to do the thyroid episode, Dr. Benito, she was awesome. She's a diamond. And the they're very hard to find, yes, really, really difficult to find someone that can thoughtfully manage your thyroid levels. Not a not an easy, not an easy lift, finding people like that. I'm sorry, because it sounds to me like you were just having thyroid issues. And then they started dumping on like cortisol on to, you know, cortisol into you. And then that just made everything worse and, and masked. And they thought they were treating something. So probably everybody stopped looking at the real issue. Yeah, yeah. And you didn't have the internet back then either. No, right. Huh. Jeez, can you tell me something good?

Grace 27:43
Tell me something good.

Scott Benner 27:45
I'm looking. I'm looking to move this the other direction? Yeah.

Grace 27:50
Where did we want to go with this, you won't go back to let's talk about the pooping thing.

Scott Benner 27:56
I was gonna say, you mentioned poop. And I mean, we're halfway done already. So like, what do you do for a living?

Grace 28:03
I'm a colon hydrotherapist. Now,

Scott Benner 28:05
how do you get into that, and I don't mean to get into

Grace 28:09
that. Get into that because you're sick. So what happened with me besides the the throwing up the food and stuff, and I was on a predominantly liquid diet for, I want to say about a decade, just because I couldn't process solid food very well. And so I had trouble passing food. And in forums and stuff on the internet, people talk about that, but it's not something people really want to talk about not being able to go. So what I kind of wanted to put out there for people is just my story and things that helped me, because I was at a point where the doctors were giving me a gallon of MiraLAX every Friday night to try to go. So it was like doing a colonoscopy prep every Friday night. And so I would go and then that stopped working. And they've had me on a bunch of different laxatives that start working and they have me on some newer drugs Linzess ama teas and my glucose is 123 and it's beeping at me. And those didn't work. And the only way that I could get stuff out was like those old grandma like red rubber enema bags. I was doing. I go to work, come home, cook dinner, clean the house and then I go to the bathroom and I would they hold like one and a half, two quarts, something like that. And I was doing anywhere from one to 15 of those a night, every single night and succession trying to get something out of me. And my stomach would blow up like eight inches like I'd have to bring different clothes to work to wear because I just couldn't get stuff out. And so that was a weird way to live and they wanted to But when they diagnosed me with gastroparesis, and I couldn't go to the bathroom, it had gotten to the point where they wanted to give me a feeding tube and ostomy bag. And I didn't want to go that route, the ostomy bag really scared me. And so I just decided to go. I was like, if I can't eat, then I can't eat. And I'll just like, try to get nutrition any way I can. And so I'll just like, make my own juice and just juice and just be on a liquid diet and live like that. And I did that for a couple of months. And that changed a lot of things in a positive manner for me, but it did not help me go to the bathroom. And so it wasn't until, like 2017 that I tried colon hydrotherapy. And that worked. And I did quite a few sessions of that. And what that did for me, because the last the last five years from like, let's see 2012 to 2017. And I got to the point where I never even had an urge to go anymore. It was just completely absent. And so I started doing colon hydrotherapy, just out of desperation, which is basically kind of like a half hour enema. And after I did a number of those, probably like seven of them in a fairly quick order. It like, kicked in the peristalsis. And my colon and I started going to the bathroom every day.

Scott Benner 31:30
Alright, so hold on one second. How does this work? Now in my cartoonish mind, we just pump the water in my mouth, and then it just blows out the other side? I'm sure that's not what happens. So the water goes in your butt. Is that correct? How much how much water in your butt.

Grace 31:49
It can be up to 12 gallons. That being said, it doesn't all go in at once. It's a process. Like if I did an enema with just one of those bags that only gets like your rectum. And so with colon hydrotherapy, it goes in your rear end, and it goes throughout the entire large intestine, and just cleans everything out and evacuate everything out there.

Scott Benner 32:16
So this is not much different than if your ear is clogged and they get water behind your ear and fill up your canal and then it pops out the wax.

Grace 32:23
Mm hmm. Got it?

Scott Benner 32:25
Are there any reasons why a person wouldn't want to do this? Is it dangerous?

Grace 32:31
I'm not dangerous, per se. There are some contraindications for people with diverticulitis. People that have had any recent surgeries people with Crohn's and Ulcerative Colitis.

Scott Benner 32:51
So anything that's going wrong back there? Mm hmm. Yeah. So like, Yeah, okay. And you don't want to block your butt? Like, right there. Right.

Grace 33:01
Right. Or if there's, you know, any kind of bleeding or infection or anything in there. You don't, you know, like, you want to have a healthy column? Because I don't know. I don't know if that spreads it around. Or, you know what I'm saying? But

Scott Benner 33:15
how do you figure that out before you fill her up?

If you're using insulin, knowing what your blood sugar is doing is monumental. Is it going up? Is it going down? How fast is it doing that? Maybe it's steady? Is it 96? Or 150? Is it to 10? Or 183? Well, you don't want to check all the time with a meter. And even if you did, even if you had a great meter, like the Contour Next One. That meter just gives you a look into a moment, right? I tested my blood sugar at 9pm. And it was 140. Great. That's good news. I know my blood sugar's 140. But is it moving? How fast is it moving Dexcom can tell you that with the Dexcom G six dexcom.com forward slash juice box, use my link. And you may be eligible for a free 10 day trial of the Dexcom G six, you can find out what I'm talking about how great it is to know the speed, direction and number of your blood sugar at a glance. I will pick up my phone right now. It's an iPhone, but you could do this with an Android as well. I see my daughter's blood sugar is 130. At the moment, it's very steady. Actually. We just did a pump change recently. And we're just kind of bringing her blood sugar back down. You know how after a pump change, you might need a little more insulin here and there. Anyway, you know about that point is we're watching it right now. We're making boluses that are thoughtful and we're moving your blood sugar back to where we want it. This is all made much easier in my opinion by the Dexcom G six again, Dex comm.com forward slash juice box you will not regret checking out the Dexcom I'm gonna head right now to N pen today.com I n p e n t o day the microphones blocking my keyboard.com in pen today.com Oh, look at that. Here's the website, nice graphics, little video running very nice. Here's what you get within pen, you get an insulin pen. That's what you need, right? If you don't want a pump, and you want an insulin pen, wouldn't it be nice if it did some things for you? Not just the little Jabby thing with insulin in it, but had some other stuff? Like how about if it had a dosing calculator, or carb counting support a digital logbook? Or the ability to remind you when you needed a dose of insulin? A dose reminder, you say that sounds wonderful. How could it insulin pen do that Scott? Well, that pen that said insulin pen, the ink pen connects to an app on your smartphone. Oh, wait a minute. Technology you say That's correct. That app gives you a look at your current glucose level. dosing calculator, active insulin remaining glucose history reports, Activity Log dose history meal history. And of course, we just said current glucose. All right there on one screen connected to your insulin pen. Now you're interested, hear it in your voice? Yes, I hear your voice in my head. No, I'm just kidding. I don't hear you. But anyway, hey, listen, here's a little offer that in Penn has. Now this is only available to people with commercial insurance, of course Terms and Conditions apply. But you may pay as little as $35 for an NPN because Medtronic diabetes doesn't want cost to be a roadblock to you getting the therapy you need. And within Penn's access program, you may pay as little as $35. In Penn today.com, links in the show notes, links at juicebox podcast.com to Dexcom. In Penn, and all the sponsors in pen requires a prescription and settings from your healthcare provider, you must use proper settings and follow the instructions as directed, or you could experience high or low glucose levels for more safety information visit in Penn today.com.

Grace 37:26
For myself, or other people just

Scott Benner 37:27
talking about you Yeah, I don't know how they're viewed. Okay. Like, did you go to a doctor and say, Hey, I'm thinking of blasting my butt full of water. And I went off, it's okay.

Grace 37:36
No, that was just kind of like, that was kind of like an internet thing. And just meeting

Scott Benner 37:42
other people who had had success with it. Yeah, I say, okay. All right. So you did it. And not only did it help it help, I mean, because he was probably very relieving to get everything out, I would imagine. And then you started going more regularly on your own?

Grace 37:57
Yeah, I didn't go for predominantly I like I might have an urge once a month to go for, like the first. I don't know, seven years or so. And then like the last five years, I didn't have any urge at all. And then I did this several times. And then I was able to start going on a daily basis. I didn't always completely empty but at least I got stuff out. Yeah. And I didn't find out until this year, when I moved to Wisconsin, that I've had several operations for endometriosis. And evidently, there's a thing that they can do. My doctor my gastro referred me to it is called visceral mobilization. And that is where they just feel on your stomach and they press down. It's a form of massage, and they could feel adhesions. And I had severe abdominal adhesions. I've had five abdominal operations. So all of my insides are also besides the gastroparesis, all of my insides are stuck to each other. So it's kind of like if you went in your gut and like somebody put a spider in your gut, and it weaved a web over everything. So stuff couldn't move.

Scott Benner 39:10
Can they fix that? Well,

Grace 39:13
they're supposed to be able to fix it, like they go in and they break it up, they just press on where they feel the tightness, and they release those adhesions. And I was like, Oh, am I going to bleed internally or like what's happened and if you're, I call them the gut rep. Or if you're ripping stuff up inside of me, and he said, there's not very much blood tissue and that kind of stuff. And he said, it's kind of like if you took scotch tape and wrapped it around your hands with the sticky side out and then rubbed it on the carpet, and then tried to stick the tape back together. But unfortunately for me, they also told me I just found this out. The endometriosis doesn't necessarily stop when you get all your woman parts cut out, which I had done. You got a hysterectomy? Oh yeah, when I was 32 Um, so I guess that can still keep growing regardless. So for me, instead of being able to get the massage and and get the adhesions tore out, I have to do it for maintenance. And that made that also made a huge difference in being able to go to the bathroom and or have your belly

Scott Benner 40:18
massage. Uh huh. Yeah, it's done by a doctor is done

Grace 40:23
by physical therapist. My, my gastroenterologist referred me for it.

Scott Benner 40:28
Does it hurt while they're doing it? Yeah.

Grace 40:32
It's not really bad. It's not anything that like, lays you out or stops her stops you from doing your daily business or whatever it kind of feels like after you're done sore, like if you had done a like a hard, hardcore workout, like core workout. Do you have to go to the bathroom right after he finished? No, no. Okay, now, but after he started ripping stuff apart in there where everything was stuck together. I was able to go from like once a day to sometimes three or four times a day.

Scott Benner 41:03
Interesting. How often do you do the massage?

Grace 41:07
I still have to get it probably once a week, once every two weeks just because I'm kind of messed up inside. So

Scott Benner 41:16
does your insurance companies that do hate mail?

Grace 41:19
Well, my insurance company this is interesting. So I happen. I still got stuff growing in me and causing these adhesions, endometriosis, or whatever is still growing in there and causing issues. And so insurance wants you to get better. They want you to progress or they if you don't progress, then they don't want to continue covering your treatment. So I had to go outside the insurance. And I have to pay cash to get this done. Because the insurance will not allow me to do it for maintenance. Oh, yeah. So it's just you know, it is what it is. Jesus. Why would that? I don't know, why did they sometimes cover some insolence and not? And what you know what I mean? It's just

Scott Benner 42:09
intermediary. So this is interesting, because it is like an inflammation condition, but it's not characterized as autoimmune.

Grace 42:15
No, yeah. And I looked at it's interesting. Yeah, nothing with me as autoimmune. They all say I'm a complicated case.

Scott Benner 42:24
Yeah, that doesn't seem comforting at all. Grace, you've taken me a number of different directions. I know. It's causing me not to be able to find my, my, my North here. My compass is just spinning in circles. Are you okay? Yeah. Generally? Good. You think of yourself as being well?

Grace 42:49
Well, as well as I, you know, it is what it is. But yeah, for the most part, I will tell you, you know, and I've mentioned this probably on the Facebook group before, but I've had such a weird thing from all the different doctors and so many different things that the doctors didn't know what to do with or whatever. And I went through a period of time where I really didn't like, have any hope about things. And my quality of life was kind of down and the podcast from everything I've been through in the like, the last 30 years was the the only thing that gave me not only hope, but like tangible hands on experience that actually made a difference. I'm glad. Yeah. It was huge. Because I was like, once they told me that the diabetes thing with the insulin thing, I was like, I don't want nothing else. I can't hang him, you know? Yeah. And now it's not like that big of a deal.

Scott Benner 43:55
Well, you're a one seat. So you, you came into the group like a wrecking ball, like in a like a delightful, sparkly wrecking ball. You were just like, I'm here. I love this podcast, like you were very, super excited. I appreciate it, actually. And so you're just saying that you got management tools from the podcast right at first? Absolutely. Yeah. And that was a big change for you a big difference.

Grace 44:16
It was huge change because I didn't, anytime I had hope in the past for something. There was never any resolution, there was never any, like, how to go forward, how to find somebody to help me or how to help myself. You know, it was just like a bunch of roadblocks and dead ends until the podcasts, okay? Because I really didn't know how I was going to deal with the insulin because in other groups, I had run across things where people were just, it was fear based, you know, and the advice you get was fear based things like don't ever drive a car if you're under 100 or you know, just craziness and then I found you and I found the Facebook group and it just It really helped. I mean, my last one was a 6.0. And was it really? Yeah, so I started out 10.4 A year ago and then I was a 6.0. I had got down to a seven I think it was on MDI. And then I switched to the pump and that pump to the Omni pod, and it's, I'm glad expect to be probably in the fives next time

Scott Benner 45:30
and you're managing that well with gastroparesis too.

Grace 45:33
Yeah, and I guess it's, I guess it's a, you know, a combination, because there's gastroparesis, and then there's the adhesions, because the guy that did my massage, he's tells me things like, I didn't know any of this, that your stomach has to turn, like a quarter of a turn every so often to digest your food. And my stomach was attached to my ribcage and attached to my diaphragm. So it couldn't move at all. So that has, so there's like a complication between, you know, and then all the rest of my organs are like that.

Scott Benner 46:11
So you definitely have gastroparesis, but additionally, the endometriosis and the scarring is making things worse. Yeah, got it. Jesus. Is there any? Now it's a stupid question. It's got nevermind. I never.

Grace 46:29
I love the stupid question.

Scott Benner 46:30
No, it's such a bad question. I'm not going to ask it. I know the answer already. And so does everybody else. Like just I don't even know why it popped in my head.

Grace 46:39
Okay, I can, I can eat I've been able to eat better since I've been getting the colonics and eaten better since the visceral mobilization massage. So it's made not only has it made a difference in the output, but it's, I'm not on a predominantly liquid diet anymore.

Scott Benner 46:56
Yeah, so you're eating solids, but, but you're still using the colonics to make sure that you're clear. Yep. And you give them to yourself, right?

Grace 47:06
Well, I can now yeah, now. Now that I'm doing it for a living, you know, it was it was, this is how it can be for some people. So if you're, like, if you can't go at all, and nobody can help you, and it's severe enough that you have to get it, then you know, you I'm talking about myself. If I was having a really bad flare up, and things weren't moving, it could cost me anywhere from four to $700 a month to go to the bathroom. So it was more than my mortgage. Oh my gosh. So that's why I and I had an opportunity to buy a business. So I did.

Scott Benner 47:47
So I have to ask you a couple of questions that are gonna be silly. But I need to know these things. After we put the water in, don't come back out the tube.

Grace 47:59
Hey, well, the tubes really small like the one I have the tubes really small the size of a pencil. So it just goes in and the water shoots in and then the waste in the water come out around it all that happens all at the same time to where it's like a giant reclining toilet. Okay, so it just goes down out the sewer.

Scott Benner 48:21
I'm going to Google hydrotherapy chair, right? Is that what I want to do? To see a picture?

Grace 48:30
Google colon hydrotherapy open system?

Scott Benner 48:34
colon hydrotherapy? Open Look at this. Hold on a second. Okay, do people generally are they super embarrassed the first time?

Grace 48:56
Some people are I get a lot of people that come in because they're they're having issues or they're severely impacted and what they give them at the hospital doesn't work. So they come in to see me to, you know, get stuff out. So I have people that are excited to do it. I have people that are mortified. You know, it just kind of runs the gamut. I have a lot of sick people. And then I have a lot of people that just are kind of, for lack of I don't know how to say this politically correctly, but they're like health freaks. Right? Right. And I call them my little moon children. Like they like to come in and get it done when the moon is full and whatever, you know.

Scott Benner 49:36
Alright, listen, I don't question people. I but I have questions for you. What's the weirdest thing you seen? It's a hemorrhoid. Right? A huge one. What is the

Grace 49:45
I don't the way that that chair is designed. I don't see people's parts. Wait, like the one that I have. The one that I have is the nozzle is self inserted. So somebody lays down on This, they insert their own nozzle, and then they cover up with the drape and then I walk in. So I don't see any of that. There's another system where the nozzles bigger and it has an intake and outtake. And then you kind of turn on your side and that one the person actually like inserts into you and holds it in there the whole time. So there's that's called a closed system. And I don't do I don't have that one. Well, I don't I don't see anything other than what's coming out. There's a clear tube that you can see what's coming out of you.

Scott Benner 50:31
How strong is the exhaust fan in the room? I mean, is it like a jet engine? Oh, there's

Grace 50:36
no odor at all. Wait, stop

Scott Benner 50:38
it. There's no odor. How could there not be any odor dust and the poop will come out?

Grace 50:43
It does. But it's encased in water and it goes straight out and into the sewer. So there's no smell. You? Yeah, your poop

Scott Benner 50:51
adjacent? You're not really? Yeah. Well, that's a strong title for this episode. It really is. Oh, I just thought for certain your most of your day was spent like ah,

Grace 51:05
but no, it's just like, like, it's just like being on a big recliner. Like if you were just going to sit back and hang out on your phone and just relax. That's kind of like what it is, except for their stuff going on? How long does

Scott Benner 51:20
it take the process? How do you know when you're done? I guess clear water.

Grace 51:25
Yeah, pretty much clear water. It goes by time it's like on the average, it's like 35 minutes. And you can kind of see when it gets to the end because it'll change from like stool into little pieces of food like where the small intestine releases its food into the large colon. It's like little pieces of food because it hasn't turned into poop yet. And then the water can change color on some people too. Like instead of brown it'll be yellow green or kind of a yellowish green. And that's like the digestive enzymes and the bile that are fed through with the food and

Scott Benner 52:00
what was my next question? Has anything ever come out that surprised you Matchbox car.

Grace 52:06
There are stories. Now I haven't personally seen this. But their stories. So the the gentleman that invented the device that I use, told a story of two different people in their 40s. And that one of them passed a Barbie shoe and one passed a Lego that they had when they were kids. So I don't know where that would stick in you and like why would not show up in a colonoscopy or something unless they never had one. But that's that's the only stories that I've heard.

Scott Benner 52:37
All right. No chunks or anything. Um, so for people.

Grace 52:43
Nothing other than what would regularly come out.

Scott Benner 52:46
Nothing that comes out where you're like, wow. Nothing like that. No, okay.

Grace 52:51
It's just pretty normal.

Scott Benner 52:53
I got you. What if I know you're not a physician doing this? Right? Like so? No, absolutely not. Yeah. What if like, you see blood, you tell him like, Hey, I saw blood?

Grace 53:02
If I did, I would, I would stop it and refer them to their doctor, but I never have like, they have to fill out a questionnaire and all of that. And as far as they know, they have to be, you know, healthy and not have any complications.

Scott Benner 53:14
insurance doesn't cover this as a cash business. And it's good. Is it going well for you? Are you like? Like, are you like, wow, I'm glad I started this like not only for your own personal like sanity, but like financially? Is it going? Well?

Grace 53:28
It's okay, I just do it part time. And if I did it full time, maybe it'd be better, but it's fine. Yeah.

Scott Benner 53:34
out of your garage, though, right? Away hilarious. By the way, if you were like,

Grace 53:40
it just made me smart. They kind of do that sometimes. In Michigan, Michigan. Yeah, I've had some people in Michigan tell me there's this thing called a Woods method. And people get like a five gallon bucket like from Menards and put it on a big piece of board. And then the people lay like kind of on a massage table. And there's like, an enema tube and they just do it like, like that. And like my device is FDA cleared. But you know, their standards, we have to adhere to one stuff, but I guess people get desperate or people just do things on their own sometimes. And so that's the thing. The woods method you could look that up.

Scott Benner 54:21
I'm not drawn to do this very frequently. You hear on the Juicebox Podcast should be considered advice, medical or otherwise, please, always physician before making any changes to your healthcare plan or sticking anything in your butt. Like think that's really important to say. I think you're gonna be the first one to get to different. I'm gonna have to say but in your disclaimer when I when I edit this show. I want to say this right now. I don't know if any of this is a good idea. Okay. And Grace is lovely. But she can also be a kook I have no idea. Right grace?

Grace 54:54
Well, yeah, I can absolutely be me. I am.

Scott Benner 54:57
Yeah, I'm just saying I'm not telling you to put water in your mouth. But, but grace is just telling you what helped her. That's all I just need to be clear about that. Because it sounds insane. And at the same time, I can understand how it might be valuable except you're it really is. Your it's for when you're in a situation where you just don't have another answer. It's not like you can just keep ignoring it till your stomach explodes, or you have to do something.

Grace 55:22
So, but you're either doing it yourself. I mean, you know, if you get to a certain point, you're either doing it yourself or seeking out somebody to do it for you. Yeah. Because it has to it has to go somewhere. And you're not going to hear a lot of people talk about this, but I guarantee you, it's a it's a thing that people do more than I think it's a thing that people suffer with not being able to go that nobody talks about. Yeah. And it's, it's kind of a mortifying thing. Like, even if you're not, like at a place to get it done. But if even if you're at home alone, doing it, there's nothing more more more, more more terrifying than, like trying to get stuff out of you. Because you can't like there's no shame after you deal with that for a long period of time.

Scott Benner 56:09
Great. You're gonna get me to say something here that I hold on. Let me let me get myself ready for this. Metamucil has changed my life in the last couple of years. Yeah, okay. But it can't just be me because there's a Metamucil shortage right now.

Grace 56:28
Well, and I will tell you that sometimes that works. And then some people that are impacted by it makes it worse. Yeah, it can make it worse. Yeah, if things aren't moving, and then you put something in there like that. It can make it worse. And I've gotten in flux from both of them. I've done better off when I've had fiber and then I've like, shut down when I've had fiber. So

Scott Benner 56:47
Right. Yeah, I'm not saying I'm just so right here. I shouldn't say this to people because I don't want anybody to know the truth. But there's a Metamucil. You want the OG Metamucil was sugar, but no flavor. It's like, it works so much better than, like the orange stuff that they make or like the flavored stuff, it is not easy to learn how to drink the first couple times. It's tough, you know, because you're basically somebody basically took dried weeds and put it in a glass of water. And it liquefied long enough for you to get it down. Like seriously, if you put the stuff I use in water, mix it up, and don't knock it back immediately. If you wait 30 seconds. It starts to like gel. And like you know, it's Yeah, starts to take shape. Like so you need to get it in quick quick. Know what the spoon but oh, god that just turned my stomach. I can't believe that's the first thing that made me nauseous in this conversation. But because I know what it looks like, I guess. But like when you go to the stuff like even the orange stuff. It's different. Like it just isn't as good. It just and you can't buy it anywhere right

Grace 57:59
now. I did not know there was a shortage on that.

Scott Benner 58:03
And I'm saying I know COVID and all and you know, we a bunch of people went home and didn't come back to their jobs and stuff like that like that. I understand. But I'm telling you like something like that for there to be a shortage says to me that a lot of people buy it.

Grace 58:19
Well evidently sell it or unless unless they're having a shortage making it.

Scott Benner 58:23
Yeah, but still. Yeah, you know what I mean? Like, how much how many people have to buy Metamucil before you can't find better? And I'm talking about like, legit, like, like, you know, like they're selling it on like eBay like it's like the black market. Really? I wouldn't lie about something like this. I have no reason. You gotta like, I'm gonna tell you that. You can get a big jug of it for 19 bucks, usually. And I just usually order it from, you know, the guy that made the books, Jeff Bezos, right. I usually just get it from him. Does everybody remember that? Amazon started as a bookstore. Anyway. Oh, I

Grace 59:06
didn't run. I didn't know. Are you serious? Oh,

Scott Benner 59:09
I know everything. This is why the podcast is fantastic. Jeff Bezos Bezos, Bezos pieces, who cares? I don't really care. He started Amazon as a bookstore. The first thing Amazon killed was like Barnes and Noble

Unknown Speaker 59:25
really Yeah.

Scott Benner 59:28
And now it's a place I get Metamucil and other things like when I need a microphone I just go on in mean like what am I going to do? So So you go on there on there. Oh my god. What am I 57,000 years old? You go on there the internet the thing I went on the box and I told it

Grace 59:48
Amazon sound water come up my nose when you just didn't.

Scott Benner 59:51
Listen, water comes out all your holes. So let's not be surprised by that grace. So, you know, just now I thought I am funny

I don't even know if I'm funny. I just think my brain is working too quickly. So anyway, this this Metamucil unflavored, like, with sugar, you can't even find a listing for it right now and I know its course, with sugar unflavored that's the one that legit works, right? Like, you put it in. And the next time you go to the bathroom, these beautiful little poos, let's call them nerds, okay, or turn, whatever you wanna call them. I have a glistening sheath across them as if God wanted them to come out of your butt. Right? You just wait till you go. You wait till your body says I have to go to the bathroom. You go, okay body, and then you walk over to the bathroom. You seat yourself, and then this will happen. No, no big deal. It's over. That's it takes two seconds. I'm going to tell you right now, I've never done this. I promise you. But I'm not 100% Certain you have to wipe when it's over. Like that's how well it goes. Right? They just come like flying out. They're self contained. It almost looks like somebody packaged them for you so they could come out. Absolutely legit. It's, well,

Grace 1:01:14
if I can find it, maybe I'll never

Scott Benner 1:01:16
find it. Because I bought it up completely. You black market Metamucil. There's a very, I finally found, like the picture of it on the Amazon. I've been talking the whole time so that I could find the picture. So everything I just said I was making up while I was Googling, and there's no ability to purchase it right now. No price on it. My wife a trip in trying to prove that she she loves me because we've been married a long time. So I can't be certain you know what I mean? Right? I know, I know. Like, just be here because like the bills get paid. And she's like, Yeah, it's easy, you know, but um, but she has a like a thing set up on her phone. Every time it comes back into stock, she jumps on and buys me one. We are now overpaying for it by 100% to get it Oh. And that's 28 ounces used to be $19. Now 28 ounces is $40. And until you've pulled with it and food without it. You're not going to know how valuable it is like she I'm very cheap grace, I think that comes across on the podcast. Like I'm incredibly, like, I hate spending money in a way that's hard to put into words. You know, like I'm wearing a t shirt now that I think is from the 70s. And so she gets embedded than he was I found a Metamucil for you. I ordered it. I was like, Oh, she was the only one I got an alert. And I jumped right on. And she I was like, thank you. When will it be here? And she told me the date. And then we you know, kind of went back to our business. And then she goes, You didn't ask how much it costs? And I said I don't care. Oh, yeah, I was like, I don't I don't I honestly don't care what you paid for it. Like if you if you sold one of the children to get it. I mean, maybe I'd start getting concerned around there. But if you could have got a case for it for like Arden, I would have made the swap easily. It just, you know, like it's that it became that important in my life. And I don't know what's up with my system, you know, or how I eat or how I don't eat or whatever. I mean, let me be honest, I had a vegetable once in the 80s. Okay, right. So I don't eat a lot of vegetables. And I realized I could, you know, I could probably help that. You know that way, but I don't have it in me. I'm like a 12 year old I eat like a child. So I don't I don't want I don't want your damn vegetables. I don't know why. I might say I was like they have a roach. I'm literally a child in my mind. I don't like the way vegetables feel in my mouth.

Grace 1:03:44
Yeah, I heard you say that.

Scott Benner 1:03:46
I'm not kidding about it. Grace. I didn't just say it to be funny. At Green Bean makes you feel like you've just grabbed my uvula. And like pulling on it. You're like vomit vomit now vomit. It's a green bean, you know? So, I mean, I can cook them. I'm happy to make them for people. I'm not bothered by them. I don't care about the smell. Submitted I go in my mouth. I'm like that I make the noise that I assume you make when you work. They

Grace 1:04:16
probably did it Mike or somebody try to talk you into yeah brussel sprouts or something

Scott Benner 1:04:24
that he didn't send me the recipe. Oh, you know where he's at right now. He's on a he's taken to Texas. He went down to Texas. He's driving around to hit the top 50 barbecue joints in Texas.

Grace 1:04:36
I know. I saw that like last night. I was like in that a tray. You

Scott Benner 1:04:39
better get some brussel sprouts too or

hey this is what the podcast is coming through. We're now shouting people out directly, just one person at a time. But no, seriously, I what I'm trying to say is I know how important it is to go to the bathroom. I clearly don't have any of your problems. And just the loss of Metamucil. In my life, like, I mean, you should have saw me. I was in like, I was in the kitchen. And I was like, Oh, I'm out of Metamucil. I didn't know that happened. And, you know, I've only got a couple more spoonfuls left. And I just like, you know, like a spoiled person. I just pull out my Amazon app, and I go to order it. And it's like, they don't have it. And I'm like, no, no, wait, we wait. Yeah, that's gotta be wrong. And then I just drove immediately to Walgreens, and then to CVS and then the Rite Aid and then I just started driving down the street to different and I it nowhere.

Unknown Speaker 1:05:32
Just that trip, man. Yeah, it's a trip

Scott Benner 1:05:35
trip and me right up on the toilet. It's what it's doing. So yeah, I mean, it's just that I know how important it can be. And I don't have all the medical problems you're talking about. So I have a really hard time even imagining what's happening to you. It sounds terrible. Like, I'm not gonna lie to you like it's a sad story.

Grace 1:05:51
Like it's hard. It's, it's, it's a horrible way to live. I mean, it's better now. And thankfully, I found stuff that helped out but you know, yeah,

Scott Benner 1:05:59
good for you. But well, wait a fight for yourself, because you could have given up a number of different times. Oh, yeah. Is there anything we didn't talk about that you wanted to talk about?

Grace 1:06:11
I don't really, I don't really think so. I think that we kind of covered everything and probably more than I even intended to cover, right?

Scott Benner 1:06:20
Listen, you should be covering those people's butts in.

Grace 1:06:23
Hey, they're covered. They got a lovely drape. It's sky blue. Is that disposable? That's right. Oh, abs everything's. I gotcha. Could you imagine if that stuff I could think back in the day that it they used to have to like autoclave it, like dental instruments and stuff because everything had to be sterilized right before it was plastic,

Scott Benner 1:06:43
you know, I'm saying disposable. Like, secondhand too, but my but right? That seems wrong. Did you claim I remember getting a tattoo and I was like, you clean that, right? It's like, Yeah, I'm like, and I'm looking at him. Like, he looks high. Like, I trust this guy.

Grace 1:07:03
I feel like a lot of them look like that.

Scott Benner 1:07:06
I'll tell you a beautiful tattoo. But you know, she drank vodka through the entire thing. And there's a moment where you're like, I'm making a poor decision right now. I know.

Grace 1:07:14
Right? Exactly. A permanent one or semi permanent. I guess you know,

Scott Benner 1:07:18
the only thing I really I thought this was great. The only I'm a little disappointed you were getting ready to talk about how terrific I was. And I cut you off. And now I'm regretting that part. Oh,

Grace 1:07:28
well, you are terrific.

Scott Benner 1:07:29
I'm just teasing.

Grace 1:07:33
I can expand on it. I don't know.

Scott Benner 1:07:35
You're really your your joy online. So thank you. Oh, well, thank

Grace 1:07:39
you. Yeah,

Scott Benner 1:07:40
no kidding. You really you add something to the to the site. It's it's hard to put into words. But there are people that come to mind when I think about that. That are and you're one of them. So I you have great enthusiasm, like you'll like like, we'll post something in the middle of the night. It's like a five year old episode. And like this episode, so good.

Grace 1:08:02
They're also good. I just, I don't know, they didn't get me excited. And they keep me. I'm glad to keep me wanting to keep I mean, I want to go for it anyways, because I want to be healthy. And I'm 58. And if there's complications, I don't like have time to play around. Right. But it's, it's wonderful. How did

Scott Benner 1:08:21
you? I appreciate that. How did you think this episode went? Do you think somebody will like this one?

Grace 1:08:27
Well, somebody out there might, you know, you never know, because it's such a private thing. You know, you never know who's dealing with what so I just figured I'd put it out there and say a couple of things that helped me in case somebody else is suffering because it's a real quiet thing. It's, it's like such a private thing. Like even for my business. To get somebody to put a review up, like five star, nobody, I mean, unless they're like, you know, like, this is their health thing in life or whatever, you know, like they're like super clean, healthy eater, but uh, you know, I do this just because, but for people that are sick and stuff, they don't even want to click like a five star button or whatever, because they don't want their name associated with the fact that they had this done like that. Anybody that now

Scott Benner 1:09:15
I hadn't considered that, but I'll tell you is a person who who has a podcast with like, you know, four and a half million downloads, and only 1000 reviews, but, but in email in private emails, like there are people who will say this, and you should question all of them. You should question me when I say it too. But I mean, I hear from 10 people a day. And at some point in hearing from them, the the concept of you've saved my life comes up in like some wording or another and it took me seven years to get 1000 reviews for my podcast. Really? Yeah, it's not some it's so it's hard for people to do in general is what I'm saying. Like forget that. It's about they can't poo You know what I mean? And I'm now you're making me wonder how many people don't want people to know that they have diabetes? And what?

Grace 1:10:06
Well, I don't know that it's that Scott because it's like, you know, twice a day I hear, you know, on the podcast and, you know, leave a review, whatever, right? It took me a year, I didn't find out till last week, how to leave a review on iTunes,

Scott Benner 1:10:24
and nobody anymore.

Grace 1:10:28
I know. That's why I got it. And I was like, I got an Apple phone because it works better with all the, you know, the Omnipod, and the dex and all of that. And I was like, it also works better with iTunes, because we can't get on iTunes with an Android. Right? And so I got on there. And I'm like, well, where's iTunes? Like, there's a place for it, you know, and I put it in the podcast, and it just came up like on an Apple app. And I was like, now I'm all confused. I don't know how to leave a review. I don't know what's going on. Yeah.

Scott Benner 1:10:53
On an iPhone, you just people problems gonna say you sound like you're 1000 years old, right? Just stop touching the buttons and listen to me, grandma. Okay, so it's Apple podcast is the native app that's on iPhones. Yeah, it's a real good app. And it's a solid way to listen to a podcast. So you open that up and searched for the show and follow the show. They used to call it subscribe. It also doesn't help that they change the wording all the time used to be No, subscribe. Now it's follow. And you follow the show? And then I think you scroll down and you can read it.

Grace 1:11:24
But like, yeah, I just yeah, just finally found that. Yeah.

Scott Benner 1:11:28
And it's fine. Like, look, I'm not gonna lie to you. Like, if you don't like the show. I mean, don't read it, please. Like. But, I mean, that would be weird. I mean, there's plenty of things that I've tried that I don't like, and I don't spend time running around making sure people know, I didn't like it. It I think that's a specifically strange decision to make. But whatever, you know, it's fine. I always just say to people, like, if you like the show, and you can say something about it, that you think will help other people want to listen, right? They can, you know, have the same experience, like leave a review. And you know, and then the truth is that I have that I get to use the reviews. It's like social media posts. And, you know, because I mean, or, or the other benefit is when people go to the app, and they're trying to make that decision, like, should I listen to this, they're going to scroll and look at the reviews. You know,

Grace 1:12:15
I'm really shocked that you said you have what around 1000? Yes, shocks me,

Scott Benner 1:12:19
it will sell well, it's not that easy to I actually, it's a really big number, like I'm proud of it. It's just it's hard to get people to like even like as an example, right? The What can I say? As an example here? Oh, okay. All right. T one day exchange. It's a great example, right? There's this short survey, if you're from the US, and you have type one year from the US and you're the caregiver, or someone from type one, you can take this survey in less than 10 minutes, that really is beneficial for people living with type one diabetes, and it'll help the show like, like, no, like, let me just be clear, I will get money if you complete the survey, right? And people are always like, the PAC is so valuable. So I mentioned it, and I have to generate four clicks to that link, just to get one person to finish the survey. And so and that's a good number. Like if you talk to people who do that kind of business, one in four, like, like a one in four completion rate is, is insane. It's a really great number. But that's how hard it is to get people to do things. And I understand it, too. I mean, there's things I supposed to do yesterday, I didn't do either, like I'm not coming down on people for it. I'm just saying it's the nature of, of the situation. So yeah, you having trouble getting a review, I think is normal, and then compounded by, like you said to people probably don't want to be associated with it.

Grace 1:13:50
Right? You know, that's private thing,

Scott Benner 1:13:52
which is a shame a little bit too. It's the same reason. I have so much trouble getting Type Two diabetics on the show. I think it type twos are not very public about diabetes. It's interesting, if you think about it, like there's a vibrant community around type one diabetes, but it doesn't exist around type two. And those people could help each other so easily. But you can't get them to talk.

Grace 1:14:15
It doesn't exist. I made a post about this one time, but I feel like it doesn't exist around type two, because they're such How do I put this, there's such an emphasis on there's a negative connotation that they brought it on themselves. And that even if the people don't internalize it kind of a shameful or whatever, it's like it's put on them. And like for me, something happened in my beta cells a long time ago. And you know, over time, and I see that a lot of times that that's where it starts for type twos is that there's some kind of beta cell issue that they're not functioning normally or whatever. And everybody just, like puts it on it that it's your fault, you got diabetes, because you ate a Snickers bar, you got diabetes, because you gained whatever amount of weight or there's something physically going on inside the body. Right? You know, and

Scott Benner 1:15:21
shame because you're right, because I'm guessing that the fear is that people are gonna think I did this to myself, I'm a slob I'm, you know, they're gonna think I'm overweight, they're gonna think all the things that people think when you hear type two diabetes, right? Like the things that people that pop into people's minds. I'm not saying that they're right, I'm just saying that that's what happens. And you don't want to be associated with that. And so you keep it to yourself. Right? And but the problem is, is that by keeping it to yourself, you don't let the information get out, that could help you really manage better Live better avoid things that you're dealing with now, you know, etc, etc. So

Grace 1:15:56
well, the other part of that, though, is that we're not taught any type of management, we're not taught how to make it better other than go home and eat right, like, I wasn't allowed to test my blood sugar. So they would give me enough strips. For one time a day, I could test and you weren't allowed to test more than that. And I had to fight with my insurance to be able to be tested to be able to test four times a day. If you're testing one time a day, you don't know what's going on with you. You don't know how to manage anything. Nobody talks about CGM. So I mean, that's just now becoming a thing for type two is like being aware of what's going on. Like we weren't allowed access to our bodies to know what is going on. So how are we supposed to do anything about it. And to that end, I have a friend that is a patient of the VA. And he's a type two, he is only permitted to test with one strip one time a week, and that's how they manage type two.

Scott Benner 1:17:02
i He's in the eights, that's terrible. It does some times strike me that the like, just what you just said, like, the biggest obstacle with helping people with type two diabetes is, is that if they have an eating schedule for their life, that's, that's not valuable for their health, just saying to somebody eat better, and get out of here. Like if they could just eat better magically, I think they would have done it on their own already, they wouldn't have waited to have diabetes, you know what I mean? Like, so if that's really the person's problem, like, right, and you just saying it to them doesn't fit. It doesn't matter if it's even the eating, like no matter what it is that people have built up. I don't know what to call it. Like, there's, there's just the way their life works, right? It's a rhythm, it's how it goes. Maybe they have trouble separating themselves from sugar or whatever they're, you know, they can't stop smoking, like, you know what I mean? Like, you don't mean like looking at a smoker and just going, Hey, you're gonna get lung cancer stopped smoking? Well, they go home and they go, I don't have lung cancer yet. So maybe it won't happen, and I'm not gonna stop smoking. And then they'll get lung cancer, like I literally have lung cancer might as well keep smoking like it's a it's the way people's minds tend to work. And then the medical community, knowing full well, you're not going to stop smoking when they tell you to says stop smoking, and then that they act like that absolves them. Yeah, I mean, like, well, I've done my part, I told the guy not to smoke. Well, yeah. But everyone knows not to smoke man, like no one, you know, it doesn't help anybody. You know, I wonder if I wonder if the thing that doesn't help type ones is that the immediacy of a bad outcome exists? It's not it's not take care of your type one diabetes, or maybe you'll get lung cancer, or maybe your type two diabetes will progress to blah, blah, blah, it's, Hey, you're gonna take care of this right now? Or three days from now you're going to be in a coma? Right? Yeah. Maybe that's the only thing that that that pushes people past their human? I don't know.

Grace 1:19:05
And it begs the question for the type twos beings, they don't, they tend not to test for them extensively, you're not allowed to see you're not allowed to see a picture of what's going on, like you're with type one. So you're not allowed to see what's going on through blood sugar, you're not allowed to see any trends. It's just, you know, pop in here twice a year and will tell you, quote, unquote, if you're good or bad, and not all type twos are overweight, and not all type twos eat like crap. And so it's like, how many type twos are misdiagnosed. And, you know, we see this all the time in the type one community because they're not allowed to even see what's going on with them in any way, shape or form. You know, and then they're blamed for it.

Scott Benner 1:19:55
I completely agree. You are making a lot of sense. I, Mike, I can't say enough. I think you're terrific. I I appreciate you having this long winding and confusing Lee. I have no I've never once thought of having hydrotherapy but now I'm like, I would probably try it once just to try it. Just to see what's up and see what happens. Like it. You see what comes out, right?

Grace 1:20:21
i Oh, yeah. And you can't see it too. Yeah.

Scott Benner 1:20:24
I also, I think, I think a lot recently about like, my, my gut biome, you know, and if I shouldn't, like, we just had it tested for our kids. And they're both taking, like, supplements right now to adjust their, their gut health. Like, each of them had a different kind of thing. So that's, yeah, so they're taking it now. I don't know enough about it yet to speak about it, you know, thoughtfully on here yet, but art is taking something right now that literally is like, I think it's smashed up poo in a capitalist. And, and she's like, she's so funny. She's just like, she said, in the jar, when they're all when all the all the capsules are together. It let me just be clear grace. It's and I was like, well, there you go. You take one out, it just smells like she goes, You know, it's funny. Together. They smell like, but when you just get one of them. It just smells like bad cheese. That's what she said.

Grace 1:21:25
That's hilarious. Just like, just like took a breath. When you said bad cheese. I was like, Oh,

Scott Benner 1:21:32
she's like, I can get that down, no problem. And that she takes no trouble at all. And she only has to do it for like 60 days or something like that. To try to make a change. Like like we're trying to figure out if she has like leaky gut, like she has acne that we can't impact for some reason. Right? Right. And and, and we did this through Addy through Dr. Benito. She sent out their samples getting the kids to get stool samples was hilarious. And that it was they weren't they weren't excited to do that.

Grace 1:22:03
That's funny. So they

Scott Benner 1:22:05
did that. And then they both got their reports back. Kohl's was Kohl's, I think there's like two things. Kohl's, like, you know, pop in once a day. And Arden's taking three. And that's, that's it when I said we're going to try it for 60 days and see if things that they've had complaints about in the past. Clear. It's worth it. That's fascinating.

Grace 1:22:24
I'd like to hear the results of that. She's that doctor is just she's really saying

Scott Benner 1:22:30
I think I'm going to do it myself so that I can talk about on the podcast better. Right, you know, because then because I know how my body works. So I'll be able to thoughtfully say like, this is what was happening before I did this thing. Here's what they told me. I did the treatment. Here's what happened afterwards whether something worked or not. Right, so I think I'm gonna do it like next year, like in the in the new year. Not around Christmas. I don't poop on cardboard at Christmastime.

Grace 1:22:56
No, that wouldn't be so hard. It would be the most festive thing to do.

Scott Benner 1:23:00
The hard and fast rule for me. Great. All right, well, I really appreciate you doing this. I thank you so much for coming on the show.

Grace 1:23:08
Oh, you're very welcome.

Scott Benner 1:23:18
A huge thanks to Ian pen from Medtronic, diabetes and Dexcom for sponsoring this episode of The Juicebox Podcast. Don't forget that you can go to in pen today.com to check out the pen and dexcom.com forward slash juice box to see about that free 10 day trial of the Dexcom G six oh what if you're eligible go looky looky I also want to remind you to go to T one D exchange.org. Forward slash juice box, take the survey. And of course, I want to thank grace for sharing her story. And if you wait till after the music, I'm going to tell you what Grace has learned about her health

head over to the place where I met grace, the Juicebox Podcast Facebook page Juicebox Podcast type one diabetes. Okay, here's my update from grace. I want to thank Isabel who also helps me with the Facebook page. She got this information for me from Grace yesterday because I was not feeling well. And I wasn't up to it. As of last week, Grace's diagnosis of gastroparesis, endometriosis, abdominal adhesions, all stand a new addition last month, she has epi exocrine pancreatic insufficiency. And this is the big one. I would do a little drumroll here, but I gotta be honest with you. It's very late and I'm not up for it. Grace is type two diagnosis has been changed to type one diabetes. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.


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#704 Mature Onset of Young Love

Scott Benner

Melanie has MODY diabetes and is here to share her story.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 704 of the Juicebox Podcast.

On today's program we're going to be speaking with Melanie who has Modi diabetes, and a host of other interesting things to talk about. Please remember while we're talking that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. We're becoming bold with insulin. If you're a US resident who has type one diabetes, or is the caregiver of someone with type one, please consider going to T one D exchange.org. Forward slash juice box. Join the registry. Take the survey help people living with type one diabetes while you're supporting the Juicebox Podcast, T one D exchange.org. Forward slash juice box. If you're looking for a place online to talk to other people who live with diabetes, you should check out the Facebook group for the Juicebox Podcast. It's called Juicebox Podcast type one diabetes. It's on Facebook. It's a private group with over 25,000 members. There's something there for everyone.

This episode of The Juicebox Podcast is sponsored by Omni pod makers of the Omni pod dash and the Omni pod five. You can learn more today at Omni pod.com forward slash juicebox. Get yourself a tubeless insulin pump. Get the army pod. The podcast is also sponsored today by us med white glove treatment for your diabetes supplies is just a phone call away. 888-721-1514. Call that number or go to us med.com forward slash juicebox to get a free benefits check. Wouldn't it be great to get your diabetes supplies without a hassle? I know it would be us med All right. That was not it was my fault, Molly, but I'm blaming my dogs.

Melanie 2:25
Hey, that works. They can defend themselves. It's the perfect scapegoat.

Scott Benner 2:29
Yeah. So there's like a few minutes before? Do you really care about this? You want me to tell you?

Melanie 2:34
I love talking. So I'll tell

Scott Benner 2:37
you what, then we're you're being recorded. Introduce yourself. You don't have to use your last name. If you don't want to, then I'll jump in and tell you.

Melanie 2:44
So my name is Melanie. I'm super excited to be here. What do you what do you want me to tell you?

Scott Benner 2:49
You're done melody that's good enough, we can start talking. Okay, perfect. So I was up very late last night. There's my mom's been having some health issues. And I'm sorry to hear that. You're very kind. Thank you. So I tried to sleep in a little this morning. And I still figured I could do everything I wanted to do take shower, you know, blah, blah, blah. And then I look over and my wife is sick and she has been sick for a couple of weeks now. She has some crazy cough it's not COVID it's just really bad and it's beating her up really good. And I look over and I'm like oh god she's not even awake. I was expecting her to be downstairs I thought other poor dogs haven't been outside yet. now live in a short amount of time woken myself up taking a shower, gotten dressed. And I'm like by the way, there's you have something talking in the background. I don't know what that was, is it? Oh, it's my daughter. She's running around. That's fine. So I'm like well the poor dogs I'll let them out real quick. So I'm just gonna let them out let them pay do what they got to do and I'll feed them when I'm done talking to you or Kelly will come down and she'll feed whatever they go outside immediately break ranks and go in two different directions. One is meandering around won't even pay them. I'm literally like I'm like indie just pee pee now. I gotta go You gotta pick now I'm texting you hey molly, I'm gonna be late. I get the big one in the house I look over cannot find the little whenever anywhere I am looking all over my property and then I just kind of widened my search pattern in my eyes. And sure enough, Melanie he showed on my neighbor's driveway. Of course not in their yard where I can maybe pretend that their dog did it but in their driveway. So I now am in my neighbor's driveway picking up dog crap. And and in anyway in the rush to go outside to help them to go out. I didn't click one simple button which is why I couldn't hear you while you were doing everything.

Melanie 4:47
Gotcha. No, that sounds like my dogs. I have one of those dogs too. He like will not go when you need him to go. But you're way kinder than I am. I just throw in the backyard and I'm like Okay, stay out there for two hours. You Fake air.

Scott Benner 5:01
I have to be honest, it's gonna sound crazy. I don't want to rush them. Like I wouldn't want somebody running into the bathroom yelling Now Scott, go do it right now. I mean, it's in case case I'm having a moment. But But I really did have to get upstairs and I really very badly because my wife was sick didn't want her to come down and have to deal with every Yeah, for sure. Anyway,

Melanie 5:21
that's, that's funny. Well, I'm glad. I'm glad you got that all sorted out.

Scott Benner 5:26
The downside of it is you spent three minutes talking to yourself.

Melanie 5:31
No, it's all good. I I work from home. And so zoom calls are like my life. So I'm used to staring at a blank zoom screen. So you're

Scott Benner 5:40
Gotcha. Okay, so why are you on the podcast? Let me think if I can remember anything at all, Lada Modi, actually, damn it.

Melanie 5:51
So close, though. One of one of the unknowns? Yeah. Yeah. So I am a Modi type three diabetic.

Scott Benner 5:59
Okay, you are and how long have you known that about yourself?

Melanie 6:03
So my story is really funny. I was misdiagnosed as a type two. When I was 18. I had one of the worst doctors imaginable. I went into him with high blood sugar. My dad's a diabetic, my answer diabetic, my grandmother's a diabetic. And we just don't know beyond that. Went into him. I was like 18 years old. I think I weighed maybe, like 120 pounds. I'm five, seven. So just to give you a little bit of context, like, that's really thin for me. And he told me start Metformin don't gain weight. That was literally his advice, which obviously, you know, is the worst thing you can possibly do. Wow. So it was a very slow progression, since at least for me, my Modio is kind of a slow onset. And so I didn't actually realize that I had what I had until I was pregnant with my first daughter last year. And I'm 20 I just turned 29. So this was like a decade of literally just trying to figure out what's going on. Like,

Scott Benner 7:10
when you say you're trying to figure out what's going on what is happening. But take all the diagnosis. I'm making quotes out of it for a second, like what was your day to day like?

Melanie 7:20
So honestly, like, to give you a little backstory, like my dad is a diabetic. And if I had to put money on it, he's probably Modi as well, but has never been diagnosed. And so I first learned

Scott Benner 7:34
about hey, Melanie, could you put that kid in a closet or something? Please? We're talking here. Yeah. Thanks very much. Just I'm

Melanie 7:42
yeah, let me ask my husband. Normally she,

Scott Benner 7:45
I'm teasing you. That's lovely.

Melanie 7:48
Oh, okay. I'm like, Well, I will try.

Scott Benner 7:51
I thought saying put her in a closet was fanciful enough that you

Melanie 7:57
know, you're I was really just looking over like, do you need me to put her upstairs with my husband, though?

Scott Benner 8:03
were you considering putting her in her closet? Let's talk about that first. Well, I

Melanie 8:06
mean, you weren't necessary? No, not at all.

Scott Benner 8:10
Not at all. If you can, if you can relocate her, that'd be lovely. Yeah, for

Melanie 8:15
sure. Um, once again, let me mute this for just two seconds, so I can yell up the stairs

Scott Benner 8:23
I don't know if I'm gonna pause this or not so bored. Okay,

Melanie 8:27
sorry. Very quick. Yeah, so she's like obsessed with her show Coco mela so I thought that she would just sit there and veg but of course, this is the one day that she's like, No, I need your I need your attention right

Scott Benner 8:38
now. Hey, once again, choke Coco melon. Yeah.

Melanie 8:41
Yeah, Coco mom. It's like this little kids show. It's really it's really the worst thing on the planet. But she likes it. So right up there. So we just go with it. Okay, thank you. Appreciate you. Okay, Kid officially in the closet.

Scott Benner 8:56
Okay. Wow, hold on a second. Cocoa melon are just on YouTube is nursery rhymes. Yeah, it's kind of like not bad, but not good. Animation. And these videos have massive downloads.

Melanie 9:13
Yeah, it's ridiculous. I'm I'm pretty sure that they're like subliminally messaging these kids. Like did you ever see zoo lander? Yeah. Where like, they like have like the subliminal stuff going in the background. I'm pretty sure it's something like that.

Scott Benner 9:26
No lie. These videos have anywhere between eight and 25 million views apiece and they're like 40 minutes long.

Melanie 9:36
Yeah, each episode has like eight to 10 little nursery songs and they're just dreadful. Well, they're absolutely dreadful. Here's

Scott Benner 9:42
one with 50 million views. A year.

Melanie 9:48
I probably contributed about 1000 So

Scott Benner 9:51
I also do it in Spanish Portuguese. What looks like Japanese to me. Yeah. Oh, somebody's a genius.

Melanie 10:01
I know right? Like you look at it, you're like I could have done that. I could have I could have figured that out.

Scott Benner 10:07
It's I am so mad at myself right now.

Melanie 10:10
I know you pick the wrong field,

Scott Benner 10:12
why am I working so hard?

Melanie 10:15
Exactly. Well, the ones that get me are like, have you seen the ones where people will just open toys? Like it's literally just a camera, like pointed at their hands, and they'll just like open toys.

Scott Benner 10:23
I saw one kid do that once I learned how much money he makes for doing it. And it just I never, I never thought about it again. It made me so upset. Hey,

Melanie 10:33
like makes you sick to your stomach, right? Like this. Alright, so

Scott Benner 10:37
now that we've dispensed with your kid, so you were saying that you think your father had? Yes has Modi two?

Melanie 10:44
Yeah. So my first encounter with the whole concept of diabetes was, I think I was about eight or 10. I was pretty young. And my dad had come home from a worksite. He's an alarm technician. So he goes out to like work sites. And he had stepped on a screw. And he didn't feel it. He had complete, like, neuropathy in his feet. And he kind of just ignored it. I think it was more so my parents didn't have insurance. There's six of us. So it was kind of like this, I'm just going to ignore it because we don't have money for it type of thing. And so he comes home. And that's literally one of the first things I remember from my childhood is he like, takes his shoe off, and it's soaked with blood. And so he ended up in the hospital. And he they almost had to amputate his foot because he had blood poisoning. But luckily he didn't. But that was like my first encounter with diabetes. And from that point on, I was just terrified, like, just scared to death that I was going to be diabetic. And that was going to happen to me, but like, nobody talked to me like, my parents are very much so like, we're just not going to talk about things. We're going to kind of just handle them and then sweep them under the rug.

Scott Benner 11:52
Oh, Catholic. Catholic gotta get right.

Melanie 11:56
Not quite close. Yeah, it was my parents. My dad just doesn't talk. Like he's not a talker. And then my mom just doesn't like dealing with things. So

Scott Benner 12:07
tell me, um, on the day your dad's foot got screwed. How old were you about?

Melanie 12:13
I want to say probably about eight or 10.

Scott Benner 12:16
So you wrote around that edge. Worried about it through your those formative years. And then when you were 18, somebody said, Hey, you have diabetes?

Melanie 12:24
Yeah. So it was an absolutely just like, terrifying thing. Because it actually was ice. Okay, so the way that I even learned to like, get myself checked, because I didn't have insurance until I was 18. And like, living on my own, I started working.

Scott Benner 12:41
And so we wait, wait, stop. You didn't have insurance as a child?

Melanie 12:44
No, my parent, no, nobody had insurance in our family. Okay, so it was just, and I mean, like, my parents had six kids. My dad didn't have like a great job. Like, I'm just I'm just amazed at the things they pulled off. Yeah, we didn't. How old?

Scott Benner 13:00
Were you the first time to get your teeth cleaned?

Melanie 13:03
Oh, I was like eight. But because they had like a family dentist that would like give them really good deals and stuff. So I definitely saw the dentist. Surprisingly, enough of all the things you think my parents cared about our teeth,

Scott Benner 13:17
but I just I just don't know, like people who didn't grow up broke. Like, I don't know if they would like think about stuff like that. Like, I didn't go to the dentist until I was an adult and I I had health insurance.

Melanie 13:30
Yeah, it's I literally my mom told us when we were kids, she was like, don't break an arm. We're not going to the doctor. Like that was that that was our like preventative measure. It wasn't like, let me teach you to climb this tree. It was if you break an arm, it's just it is what it is.

Scott Benner 13:46
Not only do you put down because you fall into that tree. And that's what's gonna happen.

Melanie 13:52
Exactly. That was like literally, the things my mom says like, she even told us one time for our dog. And looking back on all this probably explains why I'm as screwed up as I am. But she was like, if that dog gets sick, I'm not going to take it to the vet to put it down. I'm going to take it in the backyard and hit its head with a brick.

Scott Benner 14:10
Hey, Merry Christmas.

Melanie 14:12
Exactly. Yeah. So but that was just really my upbringing with I guess the medical world as a whole, it was just very much so like, we don't touch it. That's not what we do. Um, it was even like, at the point where one time my mom there was a grease fire in our house and she got like third degree burns on her arms and her face and she wasn't going to go to the hospital. Like it was just like, we had to beg her to go in the ambulance. And it was it was just but that was like the demeanor around health and hospitals and doctors. It was just we don't have money. We don't touch it. Yeah. And so that was definitely a big thing for me growing up because I just thought you don't. You don't go to the doctor, right? You You figure it out was really what it was. So then When I was about 18, I started feeling like tingling in my toes. And that was just scared the crap out of me because obviously, I saw what happened with my dad. And so I decided to take his little blood meter. And I check it. And it's at like, 347. Like, really high. Yeah. And that just freaked me out. And so finally, when I was 18, I decided to it was after that point, I decided to go to the doctor at that point, I had insurance. I didn't even know what to do with it. Like, I was like, oh, insurance. So it's that.

Scott Benner 15:35
Just holding up this car to the room going, can someone help me? Can someone help me?

Melanie 15:40
That was literally how it was like, I had no idea how to use my insurance. Nobody had taught me. And so I just go into like the United Healthcare. thing. I don't know if I can say insurance names or not. But I go into their little portal. And I like just search for like a doctor. Like anybody. I'm like, I don't know, just somebody. Of course, I pick the worst doctor on the face of the planet by chance, and so I go to him. And like I said, he was just horrible, like 18 years old, super thin, diabetic family history. He doesn't even do like he doesn't a one C. And then he gives me that Foreman says don't gain weight. That's it. Like that was the diagnosis

Scott Benner 16:21
about 11 years ago. 18 years old Byers. Yeah. Yeah, by myself in a doctor's room. Hey, you didn't? You were probably thrilled when he didn't threaten to hit you in the head with a break.

Melanie 16:32
Exactly. Yeah. So now just the whole experience. And so like, really, my whole diabetic journey was very, I guess, very lonely in a lot of ways, because I didn't know anything. And so I had to learn what questions to ask and what to do and how to advocate for myself. So it's been a very, very interesting journey.

Scott Benner 16:53
How many What was your agency when you were 18?

Melanie 16:57
It was a five points. No, not that's wrong. 6.4 I want to say, so it wasn't crazy. But it was definitely. Yeah, it was definitely in that that pre diabetic range. Okay. So that's why it's been a very slow, like onset for me. Yeah. So I started taking Metformin. And I just I don't, I don't I didn't like the way I felt I was raised very, we don't go to doctors natural remedies. And so I just felt really weird about it. And then I took it. And then shortly after that, I actually got engaged my husband, and we got married really young. So

Scott Benner 17:38
if I was you? Were like, I'm not doing this by myself. I gotta get out of

Melanie 17:43
here. Yeah, get out of my crappy little apartment. Yeah. So anyways, I got engaged. And once again, it was a very, we were in a very, like, toxic religious environment. That was about, we just pray for healing, you know, and it was is very, very toxic and unhealthy. And so we decide that I'm going to stop taking my metformin and we're just going to trust God, and just pray it away. Which is, I Oh, I could go on and on and on.

Scott Benner 18:18
I want you to slow down a couple little things. You're, you're a little excited, which is fine, but I think you're either banging on the microphone wire or touching or touching the table a lot. Don't do that. That's okay. And give a drink.

Melanie 18:32
I can get the one

Scott Benner 18:33
yourself a water, take a drink, relax for a second, okay, because we're gonna dig into a lot of stuff and I don't want to dry you out and get you over excited.

Melanie 18:42
Let me let me grab some water

Scott Benner 18:52
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Melanie 22:48
Okay, we're back.

Scott Benner 22:49
I'm super excited to talk to you about all this. Do you mind digging into some of it?

Melanie 22:53
No, not at all. It's, it's this has been my life. So I'm, I'm excited somebody wants to listen to me rant.

Scott Benner 23:01
But for $40 The therapist will listen to but that's not the point. I'll do it for free. It sounds good. The husband that we just pawned the kid off on same guy you married when you were younger? Same guy. Yes. You and he together decided to let Jesus take the wheel. In a way I was

Melanie 23:19
very much so. Um, I want to say submissive, like, it was just a very unhealthy culture. I don't know if you have any background in like, the religious world at all. But it was just a very unhealthy culture of the man is the head of the household. And, and so so he felt the need as a young man to fill that role. Right? Even though now like our relationship is completely different. Completely, like we totally had the opportunity to grow up together and realize how much just bull crap was going so much so much was going on. So

Scott Benner 24:02
you and he grew up in similar ways. And yes, and so you both kind of escaped together. And then you fall back into what you saw when you were growing up, which was the man says something the lady does it kind of thing. And exactly. For people who don't understand because they haven't ever mirrored that. The guy can feel like well, that's my job. I'm supposed to tell everybody what to do. Like it doesn't it's not as it's not as domineering from their perspective as it feels probably from your perspective. It's more like it's like, this is my responsibility. I'm supposed to be doing this end. They have no idea what they're doing. So they just knee jerk reaction everything and then run 100 miles an hour with it. Is that about right?

Melanie 24:46
Exactly. That about sums it up. So from his perspective, it wasn't an all a I'm I have to dominate here. It was just a well this is what I'm supposed to do. Got it. So So it was yeah, it's our relationship is totally different now.

Scott Benner 25:04
Well, that's amazing that you made it through that if you saw a therapist, they would congratulate you on working things out and not ruining your relationship.

Melanie 25:10
Exactly. Like we talk, we talk a lot, we're at a point where we will literally tell each other everything. And I've told them before, it is a miracle. We're still married. I don't know how we're still married. And why do you think that? I think it's because we both went into the marriage saying, we're going to work out whatever happens. And we were just really committed to being honest with each other. And I'm definitely I've learned as I've gotten older, I'm a very dominant personality, and I'm very much so a leader. I don't like leaving conflict in a box. That's not it makes me super uncomfortable. So anytime there would be some kind of conflict, I would drag it out. Until, until we dealt with it. And I really think that that was probably a big part of it is it just we forced the issue of figuring it out. And he honestly had a huge transformation when he was in college, because it just opened his mind to viewpoints that he hadn't even been introduced to. And so as he grew, and he changed a lot of who he was, he like, realized, wow, I'm kind of an act. To put it, sorry, I don't know if I can say that on here. But it's, he just realized that he needed to change. And then through that, we just, I don't know, we just talked and figured it out. And we were willing to work through it

Scott Benner 26:48
pretty cool. The hardest part is what seeing the things you don't see about yourself, and then somebody points it out to you. And you have to kind of swallow hard and look at yourself from a different perspective, you think that's the more difficult issues,

Melanie 27:02
it's definitely hard, because in order to admit, you need to be better, you have to admit that you've been wrong. And that's one of the hardest things to do. For a lot of people, especially when you are raised in that culture of I have to be the leader. I can't be wrong, I have to man up, so to speak. So I give him a lot of props for the transformation he made. Because it went from him feeling like he needed to take charge, even from a medical perspective to you tell me what you need. And I'll be there. And it's it's been a huge, huge difference for us.

Scott Benner 27:42
How did he overcome that? Do you think like, how did he give away the idea that you weren't going to be lost without his direction?

Melanie 27:51
It it was really going to school was huge, because that changed so much for him. He changed a lot of his, his politics, his beliefs, just everything. And then one of the biggest things for us though, is we actually went through a program together, it's actually one that we're doing through the company I work with. So it's a personal development program. And basically, it was all centered around asking deeper questions and digging into what is true here, not just what do you believe, but what is actually true. It forced some very deep and uncomfortable conversations between us that made us just actually own up to who we were and who we wanted to be. And that like we literally like describe her life The program is called the Creator purge. We describe our life as pre creator purge and post creator purge because it was such a big impact on us, like just digging into our own selves and realizing how much insecurity and fear there was for both of us. And it that just it just absolutely changed our marriage 100% And with that, everything diabetic for me because people think that like a diabetic diagnosis just lives on its own, but it doesn't like it affects everything in your life.

Scott Benner 29:19
know for sure. Okay, so that's kind of crazy. Day to day medically for those 11 years, you're taking Metformin, is it messing with your stomach, or did your body get used to it?

Melanie 29:31
So after taking this back when we decided we're just gonna let Jesus take the wheel, right, I've stopped all medication. I wasn't testing. It was literally like, worst thing I could do. I stopped testing. I just decided I'm just gonna have faith. And when I was 21, we had been married for about a year. We go to apply for life insurance, and they do all the bloodwork and I'm denied for life insurance at 21 because of high blood sugar First, I want to say my agency at that point was probably about a 7.7. Ish. Okay, so definitely like kind of creeping up. And so, same thing, I don't really even know anything in this world of diabetes. I'm super like disheartened, because this is still the point where our marriage is really on the rocks. I go to see a holistic medical doctor, she's actually a, what do they call it, an acupuncture doctor thought it all the

Scott Benner 30:32
way needed to be seeing maybe if they poked enough holes, me the sugar would come

Melanie 30:35
out, maybe. And so I actually started a very strict vegan diet. And so my approach because I did some Google searches, and I learned I was just looking type two diabetes, I didn't even consider type one or Modi or anything else, just because I had always heard. If you don't have type one as a baby, you're not type one, or type two. So my approach was okay, well, let me see how I can fix myself. And so that led me down the path of diet. And so I started a very strict vegan diet, which helped, because my body was still making a little bit of insulin. So the fact that I was eating so clean and so disciplined, it dropped my blood sugar enough to kind of get approved for life insurance.

Scott Benner 31:26
Where did your excellency go to?

Melanie 31:28
It went down to I think, a 6.3 or a 6.4.

Scott Benner 31:32
Did you know that that still wasn't optimal?

Melanie 31:35
I didn't, I never imagined, okay. Like, I didn't even know what a good a one C was, like. My dream was a 5.7. I thought I could never reach a 5.7 ever.

Scott Benner 31:47
Dream was life insurance? Why were you trying so hard to get life insurance when you were 21?

Melanie 31:51
It was just what we thought we were supposed to do. Like as young adults, we were like, Okay, well, we're supposed to set up retirement plans. We're supposed to get life insurance, like we were just completely winging this whole adult thing. Yeah. It was just because my husband didn't know either. His parents are very similar in the sense that they don't really talk about things they kind of just let them be. And so

Scott Benner 32:19
give me a side question. Now that you're a person who talks to their husband, why do you think other people don't talk to each other?

Melanie 32:28
I think because it can be really difficult to just embrace what is true. And to recognize that we all go through things, and we have to be okay with accepting someone else's for us. And so it can be really painful, like, some of the issues that we have had to dig through. And actually resolve were really painful in the moment. And it's really easy to choose momentary okayness in order to, like, but it to put off actual healing in the relationship. And so it's just, there were definitely times where it was hard. Yeah, where I like, I didn't want to, like, there were literally times where I wanted to just go drive somewhere else and be like, I'm staying with, so and so I'm not doing this, but I like forced myself to stay. And it's just it's really difficult. Because working through those things are, are painful. Yeah. Because you have to dig up things about yourself. You have to figure out why you are the way you are. And that's really hard.

Scott Benner 33:50
I find that even after you know, it's still hard. Yeah, that's why I'm impressed when people do it. Because I know for me, that when people I care about aren't happy, or aren't healthy, then my focus turns completely to fixing something for them. Yeah. And I, you would have a hard time talking me out of it. Believing talking me out of believing that my energy isn't best serve, trying to help them. And so even if you stepped in front of me and said it's got a don't help me, I would think I not even think it's hard to it's a it's an impulse, right? Well, no, they just don't know how bad this is for them. I see how bad it is for them. I can save them. That kind of feeling. Exactly. It's a terrible feeling to live with. Because you don't know what's happening. Like, it's not like you don't step out of the situation and never think well, they're right. They don't need my help or they don't want my help, you know, which is a weird thing to try to accept too, especially when You care about somebody and they don't want your help. And then you realize that, like, you know, there is a world where you could be right this person could be going down a bad path or going to end up having a bad outcome. And there's just nothing that they're going to let you do about it. And the more you try the further like of a chasm, you push between each other. Yeah, I think it's important. The reason I'm talking about it so much right now with you is a you brought it up and be because, you know, there are a lot of people who listen who take care of people with type one who are at some point or another may run into this exact problem. And you have to decide, like, What path are you going to head down? Are you going to ruin your relationship to save someone's blood sugar? Because eventually, eventually, you'll you'll wedge yourself so far apart, you won't have any input into their health anyway? Or do you step back and try to let them do their thing. And hopefully, you can be there, if it falls apart, or hopefully they can figure it out on their own,

Melanie 36:01
for sure. And it's, it's really become a fine, a fine balance for us. We're at the point now, because I have I have, I'm fully insulin dependent. Now, I'm just going to give you a little flash forward, I'm on the Omni pod in the Dexcom thanks to Juicebox Podcast, amazing, amazing combo, I am telling you. But he literally checks my blood sugar at night, because I usually go to sleep before I do. So he has the app on his phone, and he'll come and he'll punch in my blood sugar into the Omni pod and give whatever correction is necessary. And so we've we've come to the point where literally, he helps take care of me. And that is definitely a level of trust that we've had to get to. And I would say for anybody that maybe is dealing with that, that they have a loved one that they're trying to figure out how to help. I would say the best thing that you can do is listen and ask questions, and just go on the learning journey with them. Yeah, because there's so many nuances to being a diabetic, like, you are literally I don't have to tell you, you're literally controlling an Oregon from the outside. And there are some days where it's just it's just tough. Yeah. There's there's no ways around it. Yeah, it's just tough. It just sucks.

Scott Benner 37:29
Okay, so cheese. This has got like, so what's Modi? I still don't know what, oh, by the way, no matter how many people I talked to about Modi, I don't really know what Modi is. Did doesn't matter how many times I Google it. I don't know what Modi is, but maybe you're gonna be the one that's gonna set me straight today.

Melanie 37:47
Maybe I'll be the one I get. I get super passionate about this. I talked to everybody. And that's actually really helped me with this journey is rather than allowing myself to become a victim, I use it as a chance to educate the people around me. And I just I tell them about it. I'm like, oh, yeah, this is what I have. And, and this is what it does. And this is why and this is why and rather than giving them a chance to feel bad for me, it allows me to educate and then as I educate I learn more. So anyway, I just I think it's important to teach the things you wear to the people around you as well.

Scott Benner 38:24
Absolutely. Okay, ready? Hold on. Okay. Wait, I'm on. I'm just clicking now. I'm just on the web. I'm on the internet right now. Looking at Modi. What is maturity onset diabetes of the Young is that first of all your understanding of what Modi stands for? Yes. Okay. Yes, it is. Because immediately it then says Modi is a monogenic form of diabetes. And then my brain goes, Wait, did they mean and was monogenic? That's only because I'm not that smart. That usually first occurs during adolescence or early adulthood Modi accounts for up to 2% of all cases of diabetes in the US in people ages 20 or younger. Okay. Yes, so it makes sense. Okay.

Melanie 39:04
Yes. So to kind of break down at least to my understanding, obviously, I am not a doctor. But I have done lots and lots of Google searches. And I was actually blessed enough to land with a an endocrinologist that is really knowledgeable of Modi, which, which has been incredible for me like it was a total godsend. This woman, I have the best endocrinologist in the world, but least in my opinion. So just to kind of break down what Modi is, from my understanding. So mature onset diabetes of the young, it basically means it's diabetes that pops up in your adolescence is essentially what it means. And the thing that sets Modi apart from let's say, type one, is it is truly a genetic disorder. It is not an autoimmune disorder. So, with type one, there's the autoimmune component where obviously, the beta cells of your pancreas, it attacks itself and your your, your body stops being able to read what's happening, which is why your pancreas eventually shuts down and all that jazz, you know all that with Modi, it does not have that autoimmune disorder. So when I was first tested for type one, all of the tests came back negative. It was it was actually in my pregnancy with my daughter, the one the one we shipped off. I went in so little story storytime, I got pregnant with her. I went in to see my OB, and my primary care doctor is is amazing. He basically told me because you're dealing with diabetes, and he didn't really know either, but I don't expect family care doctors to be incredibly knowledgeable about diabetes, it's not their field. But he was smart enough, at least to say, we need you to go see an OB right away, and they're going to get you into a specialist because they're going to help you. So I go immediately I see my OB. And he sends me immediately over to the perinatal, which is like high risk pregnancy. And they hooked me up with a diabetic educator. She tells me, you can continue Metformin, or we can try insulin. It's your choice. Like I can't tell you what to do. But these are kind of your options. And so Metformin, I wasn't taking it at the time. At this time, I actually had switched to a strict ketogenic diet, which helped my blood sugars immensely, but only because I wasn't eating carbs. That was it. Like, there wasn't any other any other science so

Scott Benner 41:45
that I thought you were gonna tell me you switch to Buddha.

Melanie 41:50
Close enough. No, so at that point, I was doing strictly ketogenic, but when I got pregnant, I just couldn't maintain it. Obviously, your body needs carbohydrates, especially in pregnancy. And so I decide, well, I'll I'll give insulin a shot. See what happened.

Scott Benner 42:07
No pun intended. Go ahead.

Melanie 42:09
Exactly. Thank you. I didn't even think of that. So I start taking insulin. And magically, my sugars just fix. There's like, and I'm talking small, small doses. I'm having lows, like, crazy lows for like two or three minutes, like, and it just, I'm floored. I'm like, What is this what is happening here? Because I thought my whole life I was insulin resistant. And then I literally throw a little bit of insulin into my body. And it just like takes it like, throwing water on dry ground.

Scott Benner 42:48
Yeah, I see how you could be confused by that. Okay, that's

Melanie 42:51
exactly, yeah. And so I started talking to my diabetic educator, and she's, she's like, well, this is confusing, because you're definitely not a type two. And she was the one that first sent me for my type one antibody screening. And she's like, your tests are negative. So you're not a type one. You're definitely not a type two. I don't know what to tell you. And so basically, they told me regardless, well, I started doing digging at that point. I was like, Is there something in the middle? Is there something going on? And so good old Google, I started researching. And sure enough, I discover, but I found at the time was Modi. And it just made all the sense in the world. Wow. Because a lot of surefire signs like red flags for Modi is when diabetes doesn't skip generations. Because with like a type one, it is an autoimmune disorder. And so it's not it's not necessarily genetic. There might be genetic leanings. But it could absolutely skip generations. Like you could be a type one diabetic and not have type one diabetic children. That's just

Scott Benner 44:02
but this moody thing, just it every every line gets it like do you think your daughter will have it?

Melanie 44:09
So it is a 50% chance? Oh, wow. So if one of your parents has it, at least with my specific type, the way my endocrinologist explained it is she said it's Modi three with a dominant gene. So if I pass that gene on to my daughter 5050 chance she will have Modi and I'm actually I'm actually expecting my second daughter right now. So same thing with her if I pass that gene, she will be diabetic.

Scott Benner 44:36
I didn't know you're pregnant. Congratulations.

Melanie 44:38
Thank you. I appreciate it. I'm there inducing in about five weeks we were right there.

Scott Benner 44:45
Amazing. Look at you you're you're doing anything you know I've through this entire conversation. I'm I'm really interested and at the same time I can't wait till this is over so I can watch Coco melon and see what it is. I would play it right now but I don't think we Usually I can let the audio run.

Melanie 45:02
Probably not. But imagine Nursery Rhymes where they like put their own twist on it, but it kind of makes you mad because then they ruin the nursery rhyme.

Scott Benner 45:13
makes you angry. makes me angry. cartoon. It makes you angry.

Melanie 45:18
Yeah, no, but at the same time I love it because whenever I need to make dinner I just like turn it on that I think that was literally one of her first words was Coco. She was Coco.

Scott Benner 45:26
Coco. So it's a bit disappointing. I know so really want to be disappointed. Arden told me the other day, hey, she goes on just three days until the next season. A big mouth comes out on Netflix. I was like, oh, yeah, my daughter and I have that in common. We watch Big mouth.

Melanie 45:45
Hey, you know what, whatever. Whatever works. I

Scott Benner 45:47
have to ask you a question before we move on you. earlier. You like wanted to tell a story you said storytime. Was that a Bert kreischer reference. I don't use Bert kreischer. If you don't know those words, then it's not I was just checking. That's all. He's a commute.

Melanie 46:01
I know that. Oh, okay. I know there was the guy on was it fine. You go storytime. So.

Scott Benner 46:08
I didn't know that one. But anyway, like, I just I was wondering where that if it was just something you were saying? Or if you were referencing something,

Melanie 46:14
I think I was just saying.

Scott Benner 46:17
Okay, so let's, let's like, try to like, bring this all little tie it up. And then we're gonna build on it again. You grew up in a home where nobody talked about health. And people didn't take care of their health, you didn't have health insurance. When you became a team, you found out you had diabetes, they told you it was type two, you believed your father lived all that time with type two diabetes as well. You got married early, I did want to ask was your husband in college while you were married? Were you guys married in college,

Melanie 46:50
he had just started college. So we got married, he had been in college. He was in his first semester, when we got married.

Scott Benner 46:58
Were you in college.

Melanie 47:01
So I was taking classes at the time, we actually took a couple classes together, we like worked it out to try to be in the same class. And I was actually going to study music, music education. And I learned very quickly, that was not for me, because I hate teaching in a school setting. And so I just decided I I didn't even know what to do. So I decided to drop out and just let him go. Because financially, it was just going to be a very big burden on both of us. So he went to school, I ended up dropping out and just kept working.

Scott Benner 47:35
Is there any chance that you did that? Because you felt that it was his job more than yours? Or just because you did not enjoy this setting?

Melanie 47:44
I think it was probably a little of both. The more I dig back into what I've been through, I find that that mindset really permeated so much of what I did just everything. So it definitely wouldn't surprise me if there is that there was reasoning there. I haven't actually thought about it. So that's a great question.

Scott Benner 48:01
I know, you're very pregnant right now, I don't want to make you think about things that you haven't thought of. I'm not crying with you on this podcast this morning. I know, right? I'm just not. I'm with you. Okay, so, alright, so that happens. treat you like a type two for a while doesn't work. A lot of metformin get pregnant. And then boom, we're we're not type one. We're not type two, you start Googling Modi. And then how long has it been since you've known that?

Melanie 48:34
So once I had my daughter, because basically the perinatal goals, they told me, even if you get a different diagnosis at this point, we can't we're just going to keep treating the way we're treating pregnancy is just weird. Like, hormones are everywhere. So we can't, we're just going to keep treating with insulin because it's working. Once you have your daughter, we're going to hook you up as an endocrinologist. So once I had my daughter, that's when I went to see my endocrinologist. I told her some of my, my theories. And she sent me for actual Modi lab work, which was a genetic screening pool. And they found Sure enough, the Modi Jing and it was an actual Modi takes rediagnosis you're like Dr.

Scott Benner 49:18
House. Does that reference fall on you? Or you've

Melanie 49:22
never watched Dr. House? No, but I know what you're talking about.

Scott Benner 49:26
The show was just called house by the way. Well, that's goes to show you really did you like you took a bunch of like you took you took some information. You took some happenstance, you took some you know, historical knowledge, you went to the internet, you pieced it all together and you diagnosed yourself. Yeah, pretty much pretty with like one credit and music appreciation. Exactly. There you go. A rough shot upbringing. You're a genius, Melanie. I appreciate it all. Take it. She'd be like, Are you like every incredibly proud of yourself?

Melanie 50:04
Give her like I am. Actually,

Scott Benner 50:06
I would be too. And I am. Yeah, I'd run around telling people I'd be like, I know what's wrong with you just come here. I'll figure it out. Figure this out. You mean Google? We got this. Do you? Have you become the person? Like, are you like the? Are you like the medical person in the house? Now when something happens?

Melanie 50:25
I am. I absolutely am. It's what's funny is, and I will, I'll actually give a lot of credit to the Juicebox Podcast because there isn't a whole lot of Modi stuff out there. Because it is it's it's just such a strange type of diabetes. I just treat myself like a type one. Okay, so if I ever like need to tell somebody what's going on, and I don't want to, like sit there and explain it. I just tell them I'm a type one. I'm just like, I've got

Scott Benner 50:50
I don't want to deal with I don't know how you I don't in a world where people don't know the difference between type two and type one, actually, in a world where people would get burnt with grease and think they're not going to the hospital. I don't know how you explain Bodie. diabetes to people.

Melanie 51:03
Exactly, exactly. And so. So that's kind of how I treat. But I really have like, I just took it and ran with it. And I decided I am going to, I am going to figure this out. I now that I know what's wrong. I'm going to fix it. I'm going to figure out and sure enough, like I was able to during my first pregnancy, I started with a onesie of 6.3. And in pregnancy was insulin management. It dropped into a 5.4. In pregnancy. Wow. Which was insane. And then after that, I started this next pregnancy with an agency of 5.1. And yeah, I was. It's been amazing. And now like I peaked at 5.4. And now I'm back to 5.3. Melanie,

Scott Benner 51:54
are you back on? Are you on the show to tell me that there's finally going to be a baby named after me? What's going on right now? Well, she's a

Melanie 52:00
girl. So Scott tat

Scott Benner 52:04
it's not gonna work? Yeah, it doesn't have I don't want to I don't want to hang that on the kid. Don't worry about it. Let it go. Well, that's really I appreciate you saying that. I also, while you were saying it thought, you're the exact kind of person who would like this podcast because you completely believe that you need to kind of take your own health in your hands and am shepherded along its way and that you can't wait for somebody else to fix it for you.

Melanie 52:29
Yeah, you have to. And I've also been blessed with a great care team. I don't know if that's just because they're great, or because I do my research. But all of my doctors they are so hands off. Like, even my endocrinologist. She's like, Well, call me if you need anything

Scott Benner 52:51
else you imagine in a private room, they're like, they get together like at lunch, and they're like, hey, Melanie's like figuring all this out. We don't even have to do anything. This is perfect. Don't even talk when she comes in, let her talk first. She probably already knows what's going on, we can just nod along and look like geniuses.

Melanie 53:07
I know. Right? So it's, and that's how it is with my diabetic educator, too. She tells me she's like, You're doing a great job, you're teaching me things. She's like, you know more about your pumps that I know about it. So. So it's I feel like that's what's really important too, is you have to own your education. At the same time understanding that you can also like Teach Your doctors. Yeah, but but with the humility of understanding that they're there to help you. Because I think when I originally went into the medical setting, because I'd never went into it. And as a kid, I almost had this like, suspicion, like, all doctors are here to do is to get me to take drugs and take my money. Take my money. Exactly. And then I've realized that I do have a really great care team. But they're not with you every single day. Like they can't be and so you have to take that ownership.

Scott Benner 54:07
Yeah, no, I agree. Let me ask you a question. You're an employed person now and you have health insurance, obviously, yes. Looking back, and now that you have a child and one on the way, talk about what it's like to live without health insurance from the perspective of somebody who now knows what it's like to have it. I mean, what is it? Uh, I mean, I look at it as a scourge. You know, on us. It's a it's a plague on our house kind of a thing. Everybody should be covered with reasonable health insurance. A person at 18 years old, shouldn't walk into a doctor's office and be like, Wow, this is a doctor's office crazy. Exactly. You know, I shouldn't be 20 years old going like, I guess I should get my teeth cleaned. You know, like, like that kind of stuff like that shouldn't be happening to people. It's very basic care stuff. It's not you know, it's it's the great It's just it's just the great leap to say that people shouldn't have to live like your mom shouldn't have to burn herself and think I can't get in that ambulance. I can't even afford the ride, let alone what's going to happen when I got there.

Melanie 55:12
Yeah, you know, it's, oh, this is a whole rabbit hole, we could go down. We're about to go ahead. No, I get very frustrated especially. Well, let me put it this way. I feel like I have people, I have people in my family that are very staunch like Republican, why should I have to pay for health care for someone that's not going to be healthy. And I've had to take that opportunity to educate them. And tell them like there are some things people cannot control. And so I've learned that a lot of the people that are so so called against, like a universal health care type system. Most of them are just very, very ignorant. Some people are just awful people. But a lot of people are very ignorant. And I'm, I'm very blessed to have health insurance, because that's not something that everyone has. And I'll even go into the Facebook group and see people that are struggling with stuff. And I just, it breaks my heart. Like, and I wish I had the magic solution. I wish I do did because it is absolutely terrifying. To have to choose between your health and whether or not you're going to buy groceries. Like it's it's wrong. Yeah, in my viewpoint is it's very, very wrong. And let me say,

Scott Benner 56:41
I don't know, I don't know that it breaks so easily down. party lines. I bet you that that that that sentiment of I worked hard. Let them work hard to I think you'd find Democrats and independents and Republicans all willing to feel that if not say it out loud. I think it's a I think it's kind of a human idea. Like people like to feel like they pulled themselves up by their bootstraps, or things weren't given to them, you know, that kind of thing. And you want to feel like what you did was special. Like sometimes I don't know if it's so much about how a person would feel about another person as it is about wanting to feel like you've accomplished something like look like because if, if there are no poor people, then I don't get to feel good about what I've accomplished. If we're all on the same level, then why am I working so hard? There's some real psychological, like, bends in there that I'm sure not everybody feels that way. But there are enough there are people who do like somebody's got to lose so I can win. And if that makes sense or not?

Melanie 57:44
Oh, no, it absolutely does. Yeah. And I mean, it's definitely one of those weird mechanics of life where, technically that's true. But it doesn't mean that we should strive for that it you know,

Scott Benner 57:56
you could adjust what winning means to you. And then that's exactly like maybe winning means that a stranger you've never met before gets their teeth cleaned when they're nine years old. And that's a good thing. And you let that be, you know, exactly, I just see it pretty basically, as people's bodies break down, and everyone dies. And on the way to that death, they require health care, you're going to either give them the money at the end, after they've lived a hard life that they or just give them money in the beginning and make their life better. Exactly how the hell does that not make sense? Like you mean, like, it's the same money? Just put it in a better place?

Melanie 58:33
Yeah, no, I completely agree with you. And I think that you're spot on when you say that people want like I do when they want to feel special. And we have idolized this idea of, like you said, pulling yourself up from your bootstraps and being the success story. Yeah, you know, because I've talked to people and they're like, Well, I believe that no matter what happens, anyone can kind of pull themselves up. And it's like, but should they have to?

Scott Benner 59:00
Also can they? And is that fair? Like, you know, if you come from a systemic situation where for I mean, imagine 10 generations of people who barely get through high school and never go to college, right? Like, how is how is the the mother in 2020? That's from that line of, you know, of despair? How is she going to make a good decision for herself or her kid? She doesn't have the tools, like you said yourself, your husband had to go to college and meet a lot of other people to hear a lot of other opinions and ideas before he could kind of coalesce them together and say, Alright, well, this thing I heard when I was a kid, that's not right. But this does sound right. And I'm going to take this and this and put it together and turn myself into a person. That's, you know, we just act like that's always going to come from parents. When the truth is, it probably doesn't come from parents as frequently as we'd like to hope. Yeah, and then, you know, and then we just put it on them go, oh, they should have done a better job or they don't know how to do a better job.

Melanie 1:00:00
Exactly. Well, what's even what's funny to me, is my family, obviously, who we've talked about extensively. And just to give you a little, a little backstory to I have five brothers and sisters. So chances are, I'm not the only one with this condition. But none of them will go get tested because my family still doesn't have health insurance.

Scott Benner 1:00:23
And so yeah, they're gonna live their life into the ground then. And so

Melanie 1:00:26
I've begged them, go get tested, go figure it out. But and I finally had to decide I'm not their mother, I can't do anything. I've talked to my mom about it. I've told her, push them to get tested, but I can't. And those same siblings are some of the ones that are so against getting any type of help any type of quote, unquote, handout. And it's, it's just heartbreaking to me because I'm sitting here saying, you could have what I have, like judo, you're just ignoring it. And you have all these viewpoints that are against your own interest. And so that's that's why I say I think a lot of people say things out of ignorance is because they just they think they're fine. And it's easy to hold a viewpoint when you've never dealt with it.

Scott Benner 1:01:16
Listen, $45 worth of rubbers would have been, you know, sent to your dad, we would have been in a better situation. You know,

Unknown Speaker 1:01:24
I mean, theoretically,

Scott Benner 1:01:26
theoretically here like he would have us but horrible to think about I didn't mean to talk about your parents haven't apologized right now.

Melanie 1:01:36
No, you're fine. I've had so many uncomfortable conversations in my lifetime that nothing scares me anymore. So

Scott Benner 1:01:43
So isn't it interesting to I'm have to clear my throat I apologize. Oh, my God, I'm gonna die. Hold on. This is it's almost overwhelming. I apologize. Oh, no, no worries. I was gonna say, Isn't it interesting that your parents won't take medical help, and they don't want anybody to help them and she can't go to the hospital because she's on fire. But I'm assuming she went to a hospital have all those babies.

Melanie 1:02:11
She actually had my two younger siblings at home. God.

Scott Benner 1:02:15
Damn, no kidding. Harder, or your mom is she's like, I'm not taking help, because he's trying to make a point and I was wrong. Oh, your mom's like, no, no, this thing comes out. We all die. That's how it has to happen.

Melanie 1:02:28
My mom is pretty hardcore. I think that's where I get a lot of it from my mom is stubborn. She is a stubborn woman. And I think if she learned how to like, cultivate that better. She'd be a very, very, like, intellectually

Scott Benner 1:02:45
successful person. Yeah, I mean, look, what yeah. What part of the country did you grow up in?

Melanie 1:02:50
I mean, live in New Mexico,

Scott Benner 1:02:52
New Mexico. Okay. All right. I don't know anything about it. I was just interested to hear. Holy hell. Let's take a breath for a minute. Melanie. This is a live demo, right? It was a lot. I thought you were gonna come on and talk about moody and I was gonna go like, I don't know what moody is. And then it was gonna be over. But instead, we learned about life. I mean, I love it. It's a great podcast, everything that looks different. Listen to it sometimes ago. I know it's a diabetes podcast, but it's really not.

Melanie 1:03:22
No, I agree. I agree. And, and I fully believe that, like I kind of said at the beginning, we can't compartmentalize our health. And a lot of times people want to put their diabetes in a box, whether it be it's for them or for their kids, or, or whatnot. And what I just had to learn, and this is something that I've had to process with the ever present reality that one or both of my kids could have what I have is, I've had to already start processing in my mind. How do I teach them to have an okay life? How do I teach them that their diabetes is not everything? And we try to just think that it's all about just fixing the diabetes. And we don't realize that your mental health matters as much as your blood sugar's maybe it's not as immediate, right? Like, you can't die from a mental hypo. But it lingers with you. And it stays with you. And when we're helping the people around us kind of going back to how do you how do you help people, you cannot leave out the components of how was their mental health? How, how is this affecting their view on the world as a whole? Right, like, I had to realize down the line that a big part of why it was so hard for me to get medical help is I had this idea in my mind that I was not worth spending money on. My parents didn't have a lot. And I thought if I had to spend our money on medical things that I was a burden to our family.

Scott Benner 1:05:04
Oh, you were a drain if you did that, yeah. And so

Melanie 1:05:07
all those thoughts are so real. And we can't neglect those and we can't neglect addressing them with ourselves and with other people, too, is reaffirming for them, you're not a drain on this family. Like you have no reason to be feel guilty for this, like I spent years feeling guilty, like I would even i There were times I would tell my husband, I'm so sorry, that I'm I'm such a drain on our budget. And it was just like, it stems into everything. And so we can't just put it in a box and say, let's fix the problem. You have to say,

Scott Benner 1:05:45
I'm sorry to cut you off. I apologize.

Melanie 1:05:47
No, I was just to say we have to look at the external elements as well. How is this affecting my view on my finances? How is this affecting my relationships, right? Because it can become very easy as well to start viewing yourself as the problem child, or they just have to take care of me and we start viewing ourselves as diabetes and not as a person in the family

Scott Benner 1:06:13
sort of comes back around to what we said earlier about wanting to help somebody and I never considered that you would make that person feel like a burden, because they they were somebody you looked at who felt like they needed help even. Yeah, yeah, I really appreciate you bringing this up. I mean, I recorded I don't even know how many podcasts at this point, probably like 650 of them. And this just never come up. Like no one's ever used. Like I just seriously. I believe that people who grew up in a hard way have so much to share. And they don't get an opportunity sometimes to share it. So I'm really glad that you're here talking about it. But just in general, like the idea of not feeling worthy of having $1 spent on you is I bet you're foreign to a lot of people and probably very real to more people than you would think.

Melanie 1:07:05
Yeah. Especially if you grew up with tight was tight funds. Yeah. Right. Because you see, you see the budget and and for my husband and I we've worked very, very good with our money. We budgeted always because that was just the adult thing to do. We didn't know why we just did it. And it panned out well for us. But actually seeing those medical expenses on the budget, and I still I still struggle with it to this day. Because medical supplies even with insurance are not cheap.

Scott Benner 1:07:35
Oh, Melanie, I feel broke no matter how much money I have. I could have an amount of money and double it. And I would still feel broke. And exactly I grew up after my dad took off when I was 13. My brother Brother eight, my other brother three. So three 813 My mom went to get a job because she'd only ever had like this part time job for like extra money. And she went to them and said like, I need full time hours now like Yeah, great. But she worked in like a private clothing store. Like by private. I mean, like it wasn't part of a chain. And I remember she was making $3.75 an hour. And so that was probably an ad three ish, right. And I remember when she got to raise to four and a quarter and how excited we all were. And I remember that there were times where we had like a number. I think it was like $60 We could spend on food a week. We were relying on we rented a home. And but it was a home that was owned by a church. So it was like the parsonage that they didn't use. So they rented it out to us. And we lived in it for years, like for a long time. But then my dad left. And the entire time I lived there. They never raised the rent. Wow. So by the time I left, by the time I moved out probably seven or eight years later now into like the early 90s. They were still charging my mom $300 a month to rent a three storey house that had four bedrooms in it. Oh, wow. Because and without that we wouldn't have made it. That's crazy. Like and so like when you hear tight budget, like understand what that really means. It doesn't mean like, you know, like you can't get a PlayStation when they make a PlayStation five because it's expensive. Like it meant like we didn't have anything. Yeah, yeah, like Christmas was a Christmas we got things we need it because you just did what Christmas was was the things you needed to survive wrapped in paper. Exactly. I mean, it wasn't quite a can of soup wrapped up but you know if you needed a jet if you needed a jacket, you know you got you know if it got cold in October and you're out had outgrown your jacket. Well, you just stayed cold till December 25. So mom had something to give you on Christmas. Like Exactly, and that's even lucky for a lot of people.

Melanie 1:09:54
Mm hmm. For sure. I mean, I I totally get that. Like I don't I think I can count on one hand the amount of like, new things I got as a kid, you know, and it was just an even then there was so much guilt around it. And it's just real. You know that. Yeah,

Scott Benner 1:10:15
everything that happened in my life, I thought, how are we going to pay for that? Everything didn't matter what happened is something broke. It was like, well, that's gone now, because we can't replace it. Or if something had to happen, I don't know how we're going to pay for that. It took me years into my adulthood not to feel that way. And I and like I said, I still feel broke in my head. And I'm not. And I still feel like I am. Ironically. And my bigger point around this was going to be that broke, people have great perspective. And they and they know how to get they know how to get around and through things. And one of those ways that I'm going to tell you, you know, is a happy story is that the success of this podcast is partially due to the fact that I grew up broke. Because when I see downloads, which mean people listening, it never feels like enough to me, wow, like, so it's the same as the money like I never feel like I have enough money, because it's all gonna go away, or we're going to lose it or I'm not going to have enough. And the same thing about this like as so it translates well into helping people with diabetes, which of course also coalesces nicely into my feeling that I have to save everybody. So. So it works out really well. So like when I get hundreds of 1000s of downloads in a month. I think that's a really cool, it could be more. It's my first I never feel done. And I think that's why part of the reason why the podcast is still growing, because I still push at it like it's not successful.

Melanie 1:11:42
Yeah. And it's, it's, I found is such a fine balance. Because that backstory is what can drive you to be successful. And it's, it's important to never forsake that part of your life, like I have grown up to be very resourceful. Because I had to be, like, I bought, I started buying my own clothes when I was 13. It's just what it was. And that has made me a very resourceful person, like, I can take anything and turn it into anything else. I'm just I'm confident of that. But at the same point, it can also trap you in a mindset of, like you said, feeling like it's never enough, and you can never be enough and you can never reach enough. And so it really is this balance of learning how to take that, take the heart of the hardship, and thrive on it. But allow yourself to become new mentally and say, This is not where I have to stay.

Scott Benner 1:12:39
Ya know, I feel that like I, you know, there are weeks sometimes when I just sit here for hours and hours and hours a day for six days a week, and I don't think anything of it, because it's so much easier than the jobs I had when I was poor. Yeah, like, it doesn't feel like anything to me. I'm like, it almost feels like a dream. But at the same time, I know I should probably not be working this hard at something, but I'm not going to stop because then you also get the feedback from it helping people like look, you came off you talked about like, we haven't really talked about it today. But I made a thing and you're living healthy because of

Melanie 1:13:13
it. Exactly. And that's something I hope you're proud of.

Scott Benner 1:13:16
I am very much so thank you. But yeah, I'm not gonna, I don't know, I probably don't know how to stop. But I think that's important because this can be it can become tedious at some points, like you are the third person I've spoken to this week. When I hang up with you. I'm gonna have to say goodbye in a second. I have like 10 minutes, and then I'm gonna record another episode. Wow. So and then I do Jenny tomorrow, and there's editing tonight and editing tomorrow. And it just it really doesn't like it doesn't stop and I love it. Like I genuinely genuinely love it. But I don't think I could have done it if I would have grown up with money and with comfort. I know that sounds really strange. But

Melanie 1:13:58
no, I totally feel that and that could lead us down a whole nother rabbit hole. I know you don't have time for it. But I think that's a lot of why some people are so married to this idea of not helping other people is because they think that you need hardship and in a way you do but then you have to weigh the pros and cons Yeah, okay, well, which hardships like

Scott Benner 1:14:19
not only let me say in fairness, I believe that if I could have afforded to have my teeth cleaned as a child, my lifestyle would have been hard I'm not saying to pick people up and carry them along because I don't disagree either. By the way that you don't need the hardships actually there are people who don't have any that probably could benefit from some of them. I spent a lot of time as I had kids wondering where my kids hardships were going to come from and sometimes trying to not work history at them, but when they when I saw them have trouble I was like let them sit in it for a while. You know, like like that kind of thing. So I'm with I'm I don't not believe that. I think it's important I think pressure creates diamonds etc or whatever. But at the same time, I mean that pressure doesn't have to be a cavity in your mouth that you can't get taken care of. That's exactly silly. It doesn't have to be that you have diabetes when you're 10. And you can't afford insulin or, and I'll, I'll use this example. And it's outside of the United States. So people might, you know, like, dismiss it. But years and years ago, I spoke in the Dominican Republic, where, if you were diagnosed very early with diabetes, like super early, 234 years old, you were dead by the time you were 12, or 13. You know, and so, you think that can happen here? You don't think it's happening to people here? I bet you it is. Yeah, absolutely. So, alright, Melody, this has been an upbeat conversation. Well,

Melanie 1:15:43
I appreciate you, thank you so much for having me. And it's it's been such a joy. And I wanted to tell you, though, one one last funny thing, please. I always listened to the podcast on like two or three speed, just because to sit more, more in my day, right. And so it's it's so interesting hearing you talk at normal speed. I

Scott Benner 1:16:01
can't believe this seems normal to you. Because most people are like, Oh my God, you talk so fast. I sound like a two times speed off the listen and find out. You just have a little higher pitch just a little bit changes my pitch, just ever so slightly, but the resonance in my voice is my favorite thing about my voice. You can't take that from me.

Melanie 1:16:20
Okay, it will make you feel better. I'll listen to one UFC

Scott Benner 1:16:23
waste more time in your life for me so that I can feel better about something that I'll never know is happening or

Melanie 1:16:28
not compensate for not naming. My daughter's got it? How about that?

Scott Benner 1:16:32
Listen, you could just call the kids Scott. Or you could go with Mike, you could go with my middle name. What's your middle name? I would never say that on here. So

Melanie 1:16:41
almost got it.

Scott Benner 1:16:42
It is such a terrible name. Anyway,

Melanie 1:16:46
I appreciate you. Good luck on your next recording. And thank you so much for all you do. I really do appreciate it. And I know it's made a big difference in my life. And it will be for my daughters. Hopefully they don't have to ever deal with it. But at least they'll have an understanding and have empathy towards other people.

Scott Benner 1:17:01
That's very kind of you. I guess I don't want your 20 year old daughters to have to listen to a 70 year old me tell them how to Pre-Bolus

Melanie 1:17:09
Don't worry, I'll take care of that.

Scott Benner 1:17:11
I'll be talking slower by then.

Melanie 1:17:14
Then we'll speed it up,

Scott Benner 1:17:16
then you're gonna have to hold on one second for me. Okay. Okay.

I want to thank Melanie for coming on the show and sharing her story with us. And I'd also like to thank Omni pod and US med for sponsoring this episode. Go to us med.com forward slash juice box to get started today with us man. Or you can call them at 888-721-1514. And of course on the pod dash on the pod five and all the good on the pod stuff we talked about. Is it on the pod.com forward slash juicebox. Links to the sponsors are in the shownotes of the podcast player you're listening in right now. And it juicebox podcast.com.

Don't forget if you're enjoying the show to share it with someone else. If you're really loving it, leave a great rating and review wherever you listen. And if you're looking for that private Facebook group, it's on Facebook. That's where they keep all the Facebook groups right there on Facebook. And it's called Juicebox Podcast type one diabetes. It's a private group. I think that's all I have for you today other than to say don't forget to go to the T one D exchange and take the survey T one D exchange.org. Forward slash juicebox. I'll be back very soon with another episode of The Juicebox Podcast. I really appreciate that you listen today. Thank you


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