#977 Looping Around
Scott Benner
Tina's son has type 1 diabetes. Today we talk about loop and Omnipod 5.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends and welcome to episode 977 of the Juicebox Podcast.
On today's podcasts I'll be sorry my phone was muted. On today's podcast I'll be speaking with Tina. She's the mom of a young man living with type one diabetes. She is very involved in the looping community. We're going to talk about looping and Omni pod five today. While you're listening to us talk about that. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan for becoming bold with insulin. Check out the private Facebook group Juicebox Podcast type one diabetes want to talk to some people who are looping or using Omnipod five or that new Medtronic 780 G I've been seeing a lot of posts for that lately, but also I see T slim libre Dexcom, anything you want to talk about? We talked about it in there. Juicebox Podcast type one diabetes on Facebook, it's a private group with 40,000 members in it. I bet you there's a conversation happening right now that you would enjoy. I have a ton of episodes about algorithm pumping, go to juicebox podcast.com. Go up to the menu, click on algorithm pumping or in the private Facebook group, the feature tab, there's a whole list of episodes. This episode of The Juicebox Podcast is sponsored by cozy earth. Now, at cozy earth.com. When you make your purchase doesn't matter if you buy one thing or 50 things if it's $1 billion dollars. If you use the offer code juice box at checkout, you will save 40% off of your entire order. So just think of what 40% off a billion dollars worth of joggers would be. Now I put myself in a position where I have to figure out what 40% Of a billion is. Alright, so a billion. I mean, just in case one of you buys a billion dollars worth of sheets, towels and joggers, a billion divided by two, which would be half a billion or 500 million, right? Yeah. So then 400 You'd say $400 million off your billion dollar purchase with my offer code. That's incredible. Also, you'd say 40 cents off. $1 $40 off. 100 You know how percentages work? Anyway, that's what you get for listening to the podcast. 40% off at cozier when you use the offer code juice box at checkout. today's podcast is also sponsored by one of my favorites, US med us med.com forward slash juice box or call 888721151 for us med is the place where Arden gets her diabetes supplies from and you can as well get your free benefits check today with my link or that special 888 number. It's just for Juicebox Podcast listeners. Us med.com forward slash juicebox or call 888-721-1514 Get your stuff the way we do from us med. First of all, let me turn it right on. If you're planning on crying, let's start recording right now.
Tina 3:16
It's been a it's been an emotional last couple of days.
Scott Benner 3:19
Okay, I cried. The episode that went up today. This this young girl, she's like 18, she was talking about how she she was trying to like, do some public speaking. Yeah, she set this thing up at her local library where she was going to talk about chronic illness and service dogs. And no one showed up. And she still gave the talk to the one person that helped her set the thing up from the library and she's telling me this, and I am Oh, that's hard. I'm like crying while she's telling me and I was on cold medicine at the time. So I'm like, I think this might be the cold medicine. I was like, but she really got me. I was like, wow, she did it anyway. You're starting to get me Yeah, you know, I mean, if I shut up and no one. Listen, you don't know. Like if I showed up and no one showed up. I'd be like, I gotta go.
Tina 4:08
I think it's even. I don't know. It's how awkward it is for the one person that's there.
Scott Benner 4:15
And they all did it, I thought was really cool. So anyway, you introduce yourself the way you want to be known meaning you don't need your last name. If you bring up other people in your life, I don't care as a matter of fact, I don't care what you talk about, like with all sincerity, you can talk about whatever you want. But just don't use someone's name and then an hour from now say Oh, I shouldn't have said like Patty's name be like like, you know, can you go back and take out the 17 times I mentioned my aunt or something like that. Like please just don't do that. But other than that, it's absolutely up to you what you talk about I don't care. Make sense. I'll try not to see names okay for call names. You can curse if you want. I'll just Yeah, yeah. All right. Go ahead, introduce yourself. We'll start We're talking, you are being recorded.
Tina 5:02
All right. Hey, I'm Tina. And I have a newly 13 year old son who was diagnosed on July of 2019. So he's getting getting ready to hit us four years, actually next week.
Scott Benner 5:16
Yeah. Wow. Was it right at the beginning of July? It was July the third. Did he get it for the centennial? For the, for July 4? Was it? Uh, he sure
Tina 5:26
did. It was on a Wednesday, Tuesday, Tuesday night, my husband and my husband Phil and I were talking about some problems he had been having, which included a lot of Bedwetting, that had just arisen in the last like four or five days. And we, we decided I would take him to the pediatrician that have it checked out, because actually, we have quite a quite a bit of history with older adults on our life with UTIs. And, you know, so the first thing that's kind of coming to my mind is like, maybe he has a UTI, but also I was like, Maybe it's his age, and he's he's starting to hit a growth spurt, you know, things like that. And so, so I said, I will take, you know, give it, give it a day, and see how tomorrow goes, and if, you know, if tomorrow doesn't things don't improve, then I'll take them in to the pediatrician on Thursday, and haven't checked for UTI. And my husband said, yeah, and have a sugar checked. And I literally, it's like, one of those, you know, memorable moments of life that I can't imagine, you know, I was just like, I can't even fathom that, that would be an issue for for him. But I said, Okay, I will get up in the morning, and I'm going to take him tomorrow morning, instead of waiting, because I realized that the next day was the fourth of July, and Friday, I was supposed to fly out to Chicago to see a friend. And so I actually wound up staying up for quite a while that night, like, check in and you know, just checking on him and also thinking, well, maybe I should call him into the ER. But then also, you know, no, no, it can't be because that's, that's not, you know, we don't have problems like that. What so the next morning, I got up and I took them to the to the pediatrician immediately. And they they had had us in there like by 830 and had him pee in a cup and brought a glucometer and checked his his blood sugar. And the the pediatrician put, you know, Reese's sitting up, and I don't think I introduced my son's name, his name is Rex. But he's sitting on the table. And she puts the glucometer down on the other side of him. And she walks out of the room. And I'm sitting on the bench, and I stood up and I looked at the glucometer. And it said 271. And it was literally like you see in a movie. I felt like this, like were you back up really fast and then slam into a wall, you know. And I made no reaction. I just sat down and waited. And she came back in. And actually before she came back in recessed Mom, why is there a blood sugar checker in here? And I said, Why do you know what that is? And he says, I saw it on Tim and maybe that's a little learning app that he has and enjoys. And I said well, the symptoms that you have are, you know, they're possibly symptoms of type one diabetes, and he immediately starts screaming, I want to have a normal functioning pancreas. And I'm just like, what? And he goes, and then he starts screaming, I don't want to die. I don't want to die, which got me you know, rip me apart. And so anyway, I you know, they they taught, came back in and said we so he has type one diabetes, and we have called the hospital and you need to go straight there and they will rush you back. They're expecting him and they will get you in immediately. And I and we were actually right across the street from the hospital. He was born in and I said do you mean the hospital right across the street? And she goes oh no, he needs to go to the big hospital with the Children's Hospital. You're gonna be there for several days and I'm like
Scott Benner 9:45
look questions. Why did your husband think to say blood sugar?
Tina 9:51
Oh, I really don't know. Um, but we have no diabetes in our family. We have no Actually no autoimmunity in our family in our big family, you know, and I just don't know. But I also felt kind of like an idiot because I have a medical background. And it didn't. That just wasn't the thing that I thought of either.
Scott Benner 10:17
And then the other question I have is that where does Ries come up with functioning pancreas at nine years old? Is it from an app? Or you don't know,
Tina 10:26
Reese's? A little bit on the precocious side, shall we say? He, he has a lot of knowledge. And he collects it about all kinds of different things. And he, yeah, he said, he just everything he sees on there, he pretty much can reference in the future. You know,
Scott Benner 10:51
I mean, that's upsetting for you. But I was impressed with all all that he knew. I mean, he was nine.
Tina 10:58
Yeah, he just turned nine. It's crazy. So I cancelled my trip to Chicago, and actually canceled my trip that was going to be a month later, I supposed to go down to Guatemala. And we got on ride.
Scott Benner 11:13
Chicago and Guatemala, your friends in Guatemala as well.
Tina 11:18
We have a group from our church who goes down? Well, it's not just a group. But different people go down and have been doing it for probably 12 or 15 years now built a library and have a lot of programs down in Guatemala in this certain village called palot. Up in the mountains, and like they've taught tilapia farming and pig farming, and you know how to how to manage business well, and then built a library stocked them with computers, taught them how to use them, we have we support students through scholarships, so we, and they have to pay for school from middle school through high school through college. So we've got students that we, we support doing that well. And they they take trips a couple times a year.
Scott Benner 12:09
Very nice. Okay. So is Reese. How was the in the hospital? I'm trying to, I'm trying to imagine him in the hospital with all of his, like, half knowledge that he has built up and what was going on? Like, how did that process go for him?
Tina 12:25
He was so just just worn out. And he had a lot of symptoms that of course, we attributed to other things. But he, he was shocked. He was not happy. He was not comfortable. But we had so such a good team in the hospital. And so many people came and saw us every day there were there were usually a lot of people in there with us. And I think he took it pretty well. He gave himself his first shot in the hospital. And they eventually let us go home.
Scott Benner 13:02
How about you? How did you take it?
Tina 13:05
Not as well, I was I was a mess. And normally I'm like our family's medical reference person, the person they call when they have anything they want to know what it is, you know, can you come check this out? And we're in the hospital and I'm asking my husband, can you can you talk to the doctor when he comes in? Because I don't have my words, you know, and I was just, I'm just devastated. And it it literally took me we were in there for three days. And it it took me till about the time we left to feel like we could that I could be okay to leave.
Scott Benner 13:41
Were you worried that you couldn't manage it? Or was it like a psychological like overwhelming? Or were what do you think you're?
Tina 13:50
Well, I had no people with type one pretty much all my life. Not many people, but I had a friend in school when I was in elementary, middle school. And then I had a really good friend who in college who had it and you know, I saw that they could live and thrive. And I don't know, I just was not prepared at all I knew it would be would alter our lives forever. And I wasn't prepared for that. And and it really took me a while to you know, to be accepting of it.
Scott Benner 14:25
Yeah. Where do we meet? I have a feeling that we speak privately. In the beginning we did write like by video, right? Like we spoke.
Tina 14:41
I had written something on on the Facebook page answer to something some I made a suggestion on somebody's post. And then you said you reached out and said hey Tina, can I call you? And I said sure. So I was actually at the emergency room with my mother and when You called and I stepped outside and we were talking where the where the ambulance pulls up. And you're like, if this isn't a good time, I'm like, this is a good time.
Scott Benner 15:11
I'm looking at not to be in the emergency room.
Tina 15:13
That was that was in was either September or October of 2019.
Scott Benner 15:18
Wow, it's such a long time ago. Okay. And the I guess I just want to lead into how you got to looping at first i So what's the technology and the understanding you leave with the hospital? And how long does it take you? And how does it then what's the path you take to learn about looping?
Tina 15:42
So this was this is part of maybe part of why it was so hard for me, um, is that my husband and I are both. I'm retired, shall I say, molecular biologists, and we deal with precision and accuracy. And, you know, these people in the hospital or hospital are telling you give him one unit for this many carbs. And if he goes below 70 Give him 15 grams, you know, that kind of thing? And I'm like, Okay, what if he's at 71? And they're like, nope. And like, what if what, you know, just questions like that. Yeah, question. Okay, what if this Nope, don't do it, then what can I do even 10 carbs? Nope, give them 15. And I'm just like, okay, and then at some point, I was like, I think back about it and I feel really kind of silly knowing what I knew now, but they didn't tell me any differently. They didn't tell me the why I guess I should say okay, but I was I would, I would say can you just tell us exactly how much for this or exactly how much for that and they're like No, you'll you'll figure it out and I'm like, but we just if we just know the exact number everything we can handle this and that may maybe it was part of it was like not being able to put your finger on it. You know
Scott Benner 17:14
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Isn't it interesting, right? There's so much information left out of that, like I understand the idea if you get low take 15 grams, because we don't want you to keep getting low and 15 should be enough. But then they don't talk about like what you just said like what if really 15 is not the answer. What is the answer? six grams? Or, you know, why can't I do something at a 75 blood sugar while it's falling? If I know it's gonna get lower, and it's because they're not there. And they don't know the they don't know any of the details of the pretend scenario you're imagining in the future. So they give you this sort of like, I don't know, like it's an emergency. It's an emergency like thing. It's like, yeah, in case of Baba, bah, pull this cord. But that's kind of how it feels.
Tina 21:56
Yeah, and they don't, they don't take into account that maybe he doesn't need as much insulin for this exact same thing as he needed yesterday. You know, they don't take it into account. And
Scott Benner 22:07
I just think like one more sentence, you know, like, but it might not always be like this, or you exactly. And just as the scenario dictates like this would be, it would be an amazing eye opener for people. And they wouldn't get stuck in these like this number, this happens if this situation that happens. And instead they'd be able to see what what's really big picture happening and make better decisions. And yet it's not talked about like that. And it should be I
Tina 22:42
actually at one point, I started, you know, briefly working on a program to present to them to them being my son's endocrinologist who he's the head of the system that that we're in. And I have to say, I love him. He's He's amazing, and very accommodating and supportive and everything. But he still, you know, he doesn't live with it. He doesn't live with it in his house. And but anyway, I was working on something to to maybe be, you know, the product of which to be something that they could give two new patients that said, this is where we're at now, you know, you're at step one. Now. When these things happen, we're going to teach you step two, when things happen there, we're going to teach you step three, you know, and then I don't know I got off that path.
Scott Benner 23:38
Yeah, you're done being mad about it, and you moved on to something else?
Tina 23:42
Well, I'm pretty sure it wouldn't come to fruition.
Scott Benner 23:44
Nobody was actually going to do anything with it. Yeah, yeah. No, no. Okay, so he's managing with syringes with pens. Do you get a CGM right away? Like how does all that work?
Tina 23:58
So they gave him pens, one unit pens, and we actually had two and his ratio was, I don't know, one to 25, something like that. And so we'd have to actually add carbs for every meal because we didn't want to take carbs away. We didn't want to say you can't eat as much as you're used to because you can't, you know, we you can't have the insulin for it or will give you too much insulin. So we found ourselves actually giving him more and more carbs to to make it so he could have one unit or two units. You know, it depends on what do you what he felt like. And then downstream, I finally asked the Endo, I said, Hey, I hear their half unit pens, how about you prescribe one of those for us? And he says I could do that, which really changed everything. And then so he was diagnosed in July, and we were offered Dexcom not in the hospital. It was discussed first and then like, he even like when we went back two days later to his office, he offered it to us. And we, you know, I was kind of like, trying to settle down trying to get a grip, you know? Yeah. And I delayed it a little bit, but I think he was on it. I think it was like an as two week appointment.
Scott Benner 25:20
Okay, we got on it. And that long ago. Is that G six? G six? Yeah. Right. So I see you jump in with a really good sensor. Already a G SIX sensors really good. So like, you didn't go chi five was like, they were still getting it? You don't I mean? So. Yeah, that's not bad. And, but only half unit, the need for half units still. So you said a very little bit of insulin? I imagine. So again, was he using a very little bit of insulin? Mostly?
Tina 25:54
Yes. Yeah. Yes. And we were, you know, talking to the office to the CDE, at least on the daily about changing his basil, and, you know, changing things. And then finally, one day, it was like, we don't need to call them which was pretty cool. Yeah, to realize that, you know,
Scott Benner 26:16
I remember that. That feeling like, oh, I guess I don't really need to call. I guess I do know what to do here. Like that first moment where you think, Oh, I might be able to figure this out. That's yeah, it's pretty. It's pretty excellent.
Tina 26:29
Yeah, her endo offered us a pump pretty right away, too. And I said, you know, not ready, not ready. And it honestly, it was like his just about six months, right? After six months. diversionary so you say that we did start on the pump. And you know, going from half a unit capability down to point o five is astounding.
Scott Benner 26:57
Yeah, that's a big deal, isn't it? What pump? Did you start with? Omni pod? Okay. And so when do you? I mean, cuz I'm assuming because your background, you were looking into the technology a little bit and, and the idea of like, wanting to be precise, like, I'm assuming is what gets you to the internet. Right? So what do you find first that, like, is it me? Is that like something else? Like, where do you start to dig in.
Tina 27:26
So you were in my back pocket from pretty much day one. Because a friend whose son is type one who's who's a little older than my son, she reached out and said, we'd like to come see you on the hospital. And we we decided we didn't want anybody to come see us. That's how freaked we were. And but she she stayed in touch. And she said, I have these recommendations. And she said, you know, the number one was to Juicebox Podcast. And I was like, what is that? And so I was intrigued. But I was really afraid of going on the internet or, you know, anywhere and starting to hear scary stories. And my heart can take that. And I was like, I just can't. So I did no research at all. And I didn't didn't start listening to the podcast for a little while. And it was it was a few weeks in, I finally was like, Okay, I'm ready to ready to start branching out ready to start learning more. And so I found what I what I felt was a safe book. And it very much was and I I started listening to the podcast. And I'm joined the Facebook group. And would you like me to elaborate?
Scott Benner 28:51
No, no, I liked that idea. Because I think, first of all, I have two thoughts. There's somebody right now, in that situation, who will start to listen to this podcast six months from now. Somebody's told them about it. And they think it's a good idea, but they're not going to do it. I'm learning very much that my adoption, the rate of adoption takes a long time for people like it's not people don't just go oh, wait, there's a podcast that helps. Great. I'll start listening right now, like some people do. But for the most part, it doesn't go that way. And that's the second thing I want to say is that I understand that. Like I make this podcast, I see everybody's feedback. I know how it helps them. And yet when I hear it, I think yeah, that doesn't make sense. Like why would I just start listening to a podcast because my kid was diagnosed with something, or because I turn up at the doctor and he's like, Hey, you have type one diabetes. Your first thoughts now, I should probably go find a podcast that gets some people's first thought but not most people and it's not sexy. Or, like, you know, some of these podcasts that are like all about like, Oh, we're gonna biohack you into being like Lean and like that kind of Yeah, that doesn't actually work for anybody could biohack that would be awesome. Yeah, by the way, like all that stuff that everybody wants to be true, but for the most part doesn't work for anyone. It but I understand why those are popular even and I understand why somebody could be easily drawn into it. I, I think it's a slog to get to this, I have to be honest with you. I don't know, if Arden was diagnosed, and somebody told me there was a podcast about diabetes, and it would help me, I don't think I would have listened to it either. So yeah,
Tina 30:33
I just wasn't, I just wasn't ready to take in more more really personal, personal slash objective information. It's like, I need the objective. I need the how to, how to keep them alive, how to help them thrive, how to make it work. And then once I got that down, down, haha. Once I felt, you know, like, Okay, I think I think we can make it through a day. Okay. You know, it's like, Okay, go ahead and add in. And, um, honestly, you're the years is that for first Pat podcasts that I've, that I started listening to have of any podcasts because I had checked out podcasts before. And I was like, Oh, they're so hard, like, hard to pick what podcast to listen to, and hard to know, you know, what to download and when to download and how much it's going to, you know, monopolize my phone and you know, things like that.
Scott Benner 31:36
I'm also very snobby about how people's voices sound. Like, I don't want to hear oh, yeah, like, nasally people talk to me. I think energy bothers me a lot. So, you know, I'm bad at that. There's a lot of reasons why I start to listen to something and then think, oh, no, this isn't for me.
Tina 31:55
Oh, yeah. I've bought a book on on on Audible a couple of times and started to listen, I'm like, I can't get it. And so I I got a refund.
Scott Benner 32:03
Yeah. Also, bad microphones, bad audio, like stuff like that. Like, I've gotten better, obviously, over the years. But even on day one. I didn't know what I was doing. I still overspent on a microphone. I thought it had sound good. Or like, what's the point? Like, I wish I would have bought this one first, if I'm being honest with you, but anyway, okay, so you find this you start to dig in? What is it you figure out first? And how long does it take you to think I want automated insulin delivery.
Tina 32:37
So honestly, the comfort of having people who are in the same boat you're in and hearing how how well that, you know, how they can live and keep going and smile and laugh and everything that was of such benefit to me. And, and always is, because community is everything with type one community is everything. And I tell I help a lot of people that are newly diagnosed or who have kids that are. And that's what I tell them to start with them, like community is everything. And I do start the baby steps, you know, and I always tell them about the podcast and and tell them about the Facebook group. And I'm like, it's, you know, it may be overwhelming at first. So you may, you know, may want to peek at it and not jump in or you may want to jump in. But you know, there are people that will help you there in the wee small hours of the morning, which, you know, you did me very, you know, pretty early on, when Reese got double dosed one night before bed, and this is in the in the very early days, you know, when we were fingerstick in and you're sticking? No, it was after after Dexcom. But, um, but yeah, sometimes I won't forget,
Scott Benner 33:59
I can't tell how many people I've had phone conversations with over the years, who I've only ever met that one time. I've never seen them again, but through like, you know, a confluence of circumstances, somebody points them to you online. And they reach out and say something that just doesn't seem like it's something you can manage, like typing back and forth. And the idea I took too much insulin story is pretty common. I've had more than my fair share of conversations with people were they're like, Hey, I don't know what to do right now. Like I'm this close to calling 911. And instead they're talking to like a stranger on the phone. And, you know, you're telling them like common sense things. I'm like, Look, first of all, I'm not a doctor and call 911 If you want to, like but you just injected this much insulin. You know, what's your carb ratio? Let's reverse engineer this math and see how much you'd have to eat for this just to be a really good Pre-Bolus You know, and yeah, and that is Usually what gets people through, but most of the time, you know, I mean, some people,
Tina 35:04
yeah, and my
Scott Benner 35:07
God, I'm sorry,
Tina 35:08
I've sorry. There, there were times also when I, you know, was up at night, trying to deal with it and just very lonely and I'm like, I'm gonna turn on the podcast because this is, you know, these are people who, you know, are in the same boat as I am, who can keep me company through the night. So there, there have been, you know, been times where you've kept me company. And we always appreciate that. But um, I'd say the first thing other, you know, after the great community, probably one of the first things was that you don't need to throw 15 grams at it. And I guess along with that, if you need more insulin, yeah, need more insulin,
Scott Benner 35:56
right? Yeah, it's a big step for people. Isn't it like that? You know, it seems so silly when you say it out loud. But you know, your blood sugar is high, you probably need more insulin. That's yeah. And
Tina 36:09
it's, and I, you know, sometimes when Reese is high, or, yeah, when he's high, I'll, I'll be like, Well, I'm gonna Bolus him for, say a one unit snack. And if he needs to snack, he'll get it. And if he doesn't need it, he won't get it. And I think if you think of it in that sort of way, it's a lot easier to give, you know, to go ahead and give another unit or however much he needs. And it's not like I go say, Hey, you want to snack? You might get her you might? I don't do that.
Scott Benner 36:38
I'm gonna give you some insight, and then we'll decide later if you're getting an ice cream. No, I do. I do. Sorry, Scott. No, is that from that idea of like when I tell that story about art and getting high at basketball? Is that where that comes from? When I say like, look, we used to show up at this thing. Sometimes her blood sugar would rise, sometimes it would fall. And we didn't know about adrenaline at that time. Like we were still figuring it all out. But you know, I couldn't show up and watch her blood sugar jumped to 220. So I started Bolus and I started Pre-Bolus thing what I thought the rise was going to be, but then my wife was like, Well, what if it doesn't go up? It didn't go up last week. And I said, Well, in that case, I'll just give her enough insulin that we're basically Pre-Bolus and juicebox. And if it doesn't go up, then she can drink the juice to counteract the insulin. Is that where that hole comes from? For? You
Tina 37:25
know? I don't know. I do. I think I do remember that. Um, but I remember trying, you know, wrestling with how much, you know, this is a lot of insulin to give him but if I just changed my thought process of it, as you know, being Bolus for a snack, then, and just wait. Yeah, because he's not in a range where I would give him a snack. If I just wait for him to get there. He might have it and then I started actually extrapolating. Okay, so when he was first on the pump, or when he was on the pump, just the pump. His dia I think was two hours. And so I'd be like, okay, at one hour, I know from experience, this is how much insulin we really have to deal with. So I would see how, how fast he would start coming down. And if it took a while for him to start, I would know we're dealing with a smaller snack if we're dealing with snack at all, you know, like that. And that's the kind of thing where the, the scientist in me engages so maybe over fully?
Scott Benner 38:35
Well, so what? When did when do you find out about like DIY looping? And how long does it take you to make your way into understanding it and actually doing it.
Tina 38:47
So pretty well run after Rhys was diagnosed I had a lot of people probably more than a dozen people say, I want to come talk to you. Um, you know, I have type one somebody in my family has type one or I want to introduce you to somebody that I know who has a kid with type one. And so it was actually wonderful and so overwhelming. And you know, the people that I was the closest to they're the ones that you know, that of course came first and not everybody got you know, needed to come but I remember one of them told me told me a few things that I went to downstream and checked out and I think that one of them was was dry looping and at first I was like there is no way and in fact I remember telling Reese's No, there was no way I would ever do that. It's not FDA approved. It's you know, I don't know who these people are, you know the whole
Scott Benner 39:47
Yeah. Oh, how can read How can I possibly isn't a boy reactions to that. That news that yeah, online?
Tina 39:57
Yes, I for a long time I was you know for Do long I guess I was because I wasn't sleeping, I was like, I am not. And then all of a sudden, I'm like, we're gonna build loop. So you build it, build lead. And say, here's the computer, here are the directions build loop. And so he did. And we got, we got Rhys up and running and close the loop on the night of the second day. And, you know, I was up late watching it, and I was like, I'm gonna close this, I'm gonna see what happens. I'm gonna go to sleep. And it wasn't like, you know, close it, go to sleep. It was close it watch it for a while, go to sleep. And I got the best night's sleep I had had and months. And, you know, that's, that's how we launched with it.
Scott Benner 40:47
Yeah. Hey, the sleep will sell your for sure. On any, on any of the algorithms at all? Absolutely. So you. So did you get involved in it, then? Like, were you helping on like loot pages on Facebook? And like, did you get involved? Or did you stay on the outskirts of it?
Tina 41:05
So I pretty, you know, the as you know, the documentation for loop is vast, and loop docs. And it says, do not print this out, read it online, because it changes frequently. So I printed the whole thing out, literally, it's a notebook this thick. Because reading online for me is like, like, I might get lost, I'm not sure where to go back to, you know, I can easily mark pages easier. And keep in mind that if I really want to know something, you know, if something's critical, go look online, and whatnot. So I printed it out. And I read the docs, and he read the docs and found the looped Facebook group. And went went on there and did lots of reading and some some question asking and I saw on on somebody's post, there was an answer about how to how to Bolus for meals. That was very different from, you know, what, what I was used to doing at all, I was used to bolusing for carbs, and then later bolusing for fat and protein on the rise. And so the person that wrote, you know, answered this question on the post, I said, Hey, would you mind if I asked you some questions? And she said, Sure. So we went private. And I asked her some questions, and she helped me, you know, figure out how to how to do things the way she was saying and told me why she did them that way. And, you know, and she spent a good bit of time that day with me, which I was not expecting. And then the next the next morning, I said, Hey, this is how the night went. I said we didn't want it if I ask you a couple more questions, and she said, I'm gonna stay with you. So she did. And, um, she actually is on my admin team for loop and learn. And somehow down the way another person who's on my admin of of loop and learn, asked me if I wanted to help with some things there. And then eventually, I was invited to become a moderator on the page. Gotcha. That's great. In the group questions, it's
Scott Benner 43:11
how it works. Like somebody has to stay behind and help somebody else. You know, like most people go on, but some people stay and it's lovely. And so you had that experience, somebody helped you and you thought, wow, hang around and help somebody else?
Tina 43:24
Yeah, I've always been, you know, like, if somebody needs help you help them. Period. Yeah. Unless, you know, unless it causes harm to you or somebody that you know, somebody else. But generally, if somebody needs help you help them so I, I really, am you know, about helping people in every way that I possibly can. And what I am not a code person I do I have made some suggestions that have become some code, which I'm very happy about and and, but as for the coding itself, no clip, give
Scott Benner 44:00
me an example of something you suggested that ended up in the in the app.
Tina 44:05
Um, it's not in the app. It's a it's a what do you call it? A patch slash customization is one and this is one I wasn't the only person that suggested it, but I kind of pushed that you know. And it's the the now bar that used to be part of Luke the bar that is like where you are now. And here's, you know, behind it, the history and in front of it's the future. And so we kind of, you know, got got a little ruckus going about that again, and the person who writes or who has historically written most of the code for loop, didn't want it in there. And so wouldn't
Scott Benner 44:54
you froze. Tina, you are frozen. Frozen for It was in frozen. Tina, you frozen? You were frozen for a while. I don't know if you hear me. Yeah, he didn't want it in there. Ah. Can you hear me out? Yeah. So go back to the Yeah, the code
Tina 45:22
didn't want it in there. So became a patch. Oh, okay.
Scott Benner 45:25
But so people? Oh, I mean, I have it. I think it's nice.
Tina 45:31
Yeah, I was like, you know, constantly like holding the phone at an angle, like trying to see exactly where we are precision, accuracy. But like, it was just really valuable on he didn't want it. And I'm like, Why? Why is it that big of a deal? That you won't put it back in there. But we got it back. Um, so. So anyway, yeah, I, I enjoyed being a moderator and loot. And I do a lot of editing. And, and I was organizing the editing team for awhile, and we have kind of a big, big team, but not very many on the team actually do anything. So we have so
Scott Benner 46:16
I have a lot of experience with that. It's hard to like, there's never a shortage of people who say they want to help. But the people who follow through are lesser than the those who yell I want to help like I have, obviously, my I have a fairly robust Facebook group. I think that's a polite way to say, I don't want to say that I have the most active and valuable diabetes Facebook group that exists, but I think I do, but that's neither here nor there. But it's there's so many people in it and so many posts. Like there's two options. Either you get people to help you, or you just go wild west and you tell people like look, I'll do what I can do. But for the most part, you're on your own, which is how I grew it honestly, like I was not a very active like I don't I'm not into telling people how to be.
Tina 47:09
I remember when people were offering to help and you're like, Nope, this is a solo thing. And then all of a sudden, one day, turn the corner or hit the wall or something.
Scott Benner 47:18
I don't know what I hit, I might, I might have turned the wall and hit the corner. But I was just like, wow, this is so big. It does like I haven't looked, it changes so quickly, that I haven't looked in a little while. But my best guess is that it does 110 On average posts every day. Like I think that's about where it's at. Wow. Yeah, that's a lot to keep up with. Yeah, and you can't honestly, like you just you can try, and you can do your best etc. But it's not something that you can just, I don't know, you just can't stay on top of it the way that I think people would, would expect that you should, except I've learned that that's not really important. Like you don't have to moderate it like, quote unquote, the way people think you do. Mostly people are decent. And they they do the right thing for the most part. Yeah. And
Tina 48:11
they drag you in when they need to. And I know I've done that before. Yeah, you need to see this.
Scott Benner 48:17
Once in a while I get the like, hey, come over here. But I'm looking right now. There's just under 40,000. Members. Wow. In the last month, 35 36,000 of them were active. And the average day is about 100 posts can go up to 125. And every once in a while it goes down to 80. But only a couple of times a month. So there's a slow days. Yeah, the slow days, there's ad posts, add new posts. Yeah, there's no
Tina 48:49
way you can keep up with that. And I don't I mean, I I can't keep up with the posts and loop and learn. I don't I don't try. I mean, I don't try on the daily to keep up with them. I do like to go. I do like to keep up with them. But I'm so busy with other things too, that that that's hard for me. And I'm not the person either. That is like this is how you This is how you make it all work. That's not me. I do have insight and cool things to share sometimes. But um, but yeah, um, there are people on there, though, that I don't know how they do it. They see, you know, they basically see everything they are able to answer the questions. They have the knowledge, they have the ability to combat it.
Scott Benner 49:32
It's astonishing, like it really is, like between the new so it's a private group, so you have to answer questions to get in. But there are some times where the algorithm holds you up. And then you have to be like hand approved by somebody. I have to hand approve 30 accounts a day. And then eventually, you know, there's going to be a scammer every three months or every three weeks and you got to go in there and like stop somebody from scamming somebody out of Money or like something like that. And then once in a while somebody goes crazy. Like last night somebody went crazy. And I was like, where did that even come from? Was like, how did that happen? And it was, it was crazy. It was, this person had gotten not in my group and a different group, they had gotten ripped off. Somebody told them, they were selling supplies, they gave him some money in the person wasn't even a person, it was just a scammy account, they took their money and didn't give them anything. So they went around to try to tell people about this, which is I thought, great, you know, look out for these accounts. Like I got scammed by them. Another person comes in and says like, hey, like, you know, I, you gotta be careful. Like, it was like that kind of thing. And then those two people didn't jive. And then somehow these two people who completely agreed on trying to help people started fighting with each other. And I was, and it doesn't happen often. Like I know, people probably imagine that. That's what Facebook is constantly. I'm very proud of my group. Like it does not devolve like that. Hardly ever. But now I'm watching them fight with each other. And I'm like, What is going on now? And I'm working like, it's 10 o'clock at night. I'm making a podcast. I'm building web pages for the podcast, I'm answering emails, I've got like 30 people that want to come on the show. I'm trying to get back to them. People want to buy ads. I'm like all by myself. And I'm like you stop arguing. It's funny.
Tina 51:25
It's easy to get provoked. It really is. I know, there have been a couple of times where I've been like, an answer to somebody and I'm like, do I want that out there? No, no, go back and delete it.
Scott Benner 51:36
Yeah. Well, anyway, like it just like it's overall. And I don't even want to say this. Like, like, I'm like, oh, overall, don't it's good. Like, exceedingly overall, it's amazing. It's really good. If you're a background person looking at it, like the little things that pop up are just like, oh, no, no, no, no, no, no, don't do this. Like not now. Like why now? Or like, you know, I'm in the middle of like, trying to bring my kid home from school or something. And I've got like three notes like, Hey, you got to look at this post. And I'm like, leave me. Leave me out. Anyway, yeah. But it's, it's a really valuable way to learn, to ask questions to learn. I've never seen lurking and be more valuable. Like I had a woman pop up the other day. And she's, she's she sent me a note. She's like, I gotta tell you, I just, I've been in this group for three years. She's like, it's helped me immensely. I've never once posted or answered anybody. And I just like I I'm a faceless avatar. But I just wanted to tell you how like, helpful this was for me, like a person who's really engaged in it, but you would have no way of knowing. Oh, well, it's it's pretty pretty much almost Yeah, it's crazy. Yeah, ghost. Yeah. So okay, so now you're looping. And you find looping to be valuable. It's working for Reese. Like, you're happy with it? Yeah, slide, you don't use loop anymore.
Tina 52:58
Well, we are currently looping Oh, okay. But we've, we've gone back and forth a little bit, we started using Omni pod five back in July of last summer, use it for two months. And then back to loop. Because there were things about Omnipod five that well, I should say about loop that I missed and things about Omnipod five that were bothering me, such as I was not used to the lack of being able to control you know, adjust things. And the also, I really like being able to Bolus from a watch, which is really nice. And, you know, several other things. But also, I did find that the time that I spent dealing with data, trying to trying to get settings right, trying to understand, um, drastically was was drastically reduced when I when we were using oh, five. And, and I I valued that highly. And so yeah, we went back to loop. And then in November, I believe no later it was in October, somebody asked me about sharing information about oh five so that he could get he's thinking about putting his daughter on it. And so I did and then I said hey, do you want us to hop back over on to oh five and go through it with you? And so I did that. And he's he's learned vast amount about it, you know, way beyond what what I started and he you know, he's helped me quite a bit and he's helped a lot of your listeners and, and learning learning to be less controlling with with the management that's a huge gift of Have Omnipod five, yeah. Um, and, and, and I just really appreciate that. And I took that when, when we transferred back to loop again and December, I took that back and I was trying to tinker things and loosen up things to make it so that we didn't need to be as precise. And I feel like I did a I did a really good job of that. Um, and part of part of the reason that we hopped back over. One of the reasons was that we were having trouble with lows on on the pot five, okay. And, and I was like, I just had I raised the target up, how to restart it, had I done some of those things. back then. I could have overcome that. But, but that's not what I did. So then, honestly, we made some videos about Omni pod five. And we we've had a lot of discussion about between four of us. And in in January, we had a ski trip coming up my family did and I said I'm gonna we're going to start oh, five again, and I'm going to start it at a very reduced basil, and see what happens. Put him on the ski slope. So we and you know, part of the draw is that the system runs magnificently. Without, you know, needing to have your phone near it or needing to have the controller near it. Right, that's, you know, I am. So we've used it for a total of six months. And in the time that we've used it, we've had we've had two times on it came disconnected. Yeah, twice. That's amazing. Right? And when Yeah, when I couldn't find numbers on my phone, I go look on, you know, on on the controller, and there would be numbers. Yeah. So it's astounding, and its reliability there. But yeah, we tried to try to back again in January and stayed on it for another three months. And honestly, I think we ran out of pot. So I switch back over to loot. And, um, and we've been doing that since April,
Scott Benner 57:22
where are you going to land, do you think we'll see that
Tina 57:25
that used to really, you know, eat at me, I was like, I need to make a choice. I've got one foot on the boat and one foot on the shore and I need to make a choice. But honestly, they do they both do such a good job. depending on you know, the time you want to put in the needs that you have. Um, I just, I'm just I feel grateful that we're able to use both. And, um, I also have no problem with tinkering with settings, just like, let's see how this works. It's not like, Oh, we're gonna make sure I do the exact right thing. And I keep him down and range. I don't like it when he's out of range. But I also know how to fix that. And I also know how to tell if we're heading in the wrong direction. You know, so but with I was I was actually quite tickled with oh five, and, and what I feel was my growth and understanding of it. So we started him with the low Basal when we went skiing, and that was a complete dumpster fire day. Because we lost Dexcom about an hour into skiing. And then when when we got a new one up and running, it was 200 high. And a lot of times it floats back down, you know and and lands for you nicely, and we weren't so we were afraid to calibrate it. And it was going from 200 High to 100 high and back and forth. So we just pretty much left him high the whole time. And then I was like, Okay, I need to get this thing's right on here. And because downstream, what I was seeing was that the Max Max insulin bar, you know, the little orange bar was appearing. And I was like, okay, the way to the way to change this is to restart it with higher basil. And so I so I did and it just solved the problem and everything settled out.
Scott Benner 59:33
So when you your first idea to outsmart it was we're going to be doing activity so I'll restart the system with a lower Basal rate, but that wasn't enough. And so you went back to the regular Basal rate that you should have used or you got more aggressive or was it somewhere in between?
Tina 59:52
What I did so so that the point was to keep him from going low. Make it so that it's more aggressive. But raise the so it'll hit harder, but raise the target so that he has plenty of time, plenty of space to if it hits too hard to land, because one of the issues with him is he goes from very sensitive to not very sensitive, and he flips. And is that something you hear about with boys?
Scott Benner 1:00:28
A lot. I mean, in my, in my heart, I would wonder if that wasn't like activity related.
Tina 1:00:35
We see the activity related. needs change. Yeah, definitely.
Scott Benner 1:00:41
What about around growth?
Tina 1:00:44
Yep. And he, he's been growing like a maniac lately. And that was not something that we saw. You know, we didn't see that for a long time. And then we started seeing that, right.
Scott Benner 1:00:56
Yeah, I mean, somewhere between growth activity. Eating like this is eating cycled differently. Does he eat heavier carbs sometimes than others? That kind of stuff?
Tina 1:01:09
It's pretty random. Yeah, that could be honestly, he, you know, he's he's a regular diet eater. Yeah. And we never even before. Before diabetes, we didn't do a lot of cake. And, you know, we did on special days, it wasn't like everyday, you're gonna cookie, that sort of thing. But he also, you know, he needs plenty of that. But there are times like, for example, he's swim. And he has swim team practice at 330 these days. So I want to get him his iob insulin on board reduced by the time it's time for that. So I don't feed him or I try not to have them eat high protein, high fat for lunch, I try to push that more towards breakfast on these days. And then at lunch, make it so it's more carby. So the insulin is out of his system. He doesn't have to have that next bullet. Right.
Scott Benner 1:02:10
Right. That's great. I mean, that's, I think, like most of like successful activity is not having insulin on board while you're during the activity. Like, you know, it's just it's it's the easiest way to avoid lows. I think that and yeah, you you start to move meals around a little bit. So that, you know, to that act of insulin isn't there during the day or whatever you're doing. What, what kind of sports does he play? Yeah,
Tina 1:02:36
he's a swimmer. Just just so he's he's a your realm. swimmer. Yeah.
Scott Benner 1:02:40
So that's a lot of effort. And a lot of Yeah, excellent. Yeah. I would imagine you can get pretty low while you're serving. And then yeah,
Tina 1:02:48
and we've we've seen a man with more insulin on board, I like to send him one and with about half a unit, or less, and if it's old, that's great. Yeah, um, but we sent a man with a lot more and with it being fresher. But it's, and some days we find we can handle that better than others. But honestly, the fact that he that we can't see his numbers when he's in the pool, that's what usually sure makes it the hardest,
Scott Benner 1:03:19
because Bluetooth doesn't work through water.
Tina 1:03:22
Yeah, and actually, we did get, we put the the pod and the transmitter, the sensor next to each other a few times.
Scott Benner 1:03:32
And the rhombi. Pod five kept working. And it worked
Tina 1:03:35
in the pool. Yeah, so that's not reliable. Right. Right. So
Scott Benner 1:03:39
yeah, I don't know if people understand or listening that on the pod five, like if you thinking about loop, loop, the algorithm lives in an app on your phone. And so the brain is in the phone, and then it has to talk to the pod. The Omni pod five, which is the, you know, was the system made by the company, the algorithm actually lives on the circuit board inside of the pod. So if you don't need to be anywhere near your phone, because the sensor, the G right now, just G six is talking directly to the pod. So even if you don't see anything on a screen somewhere, it's still talking back and forth. And you're saying that even though he was in the water, you got some, some connectivity out of that. That's pretty cool.
Tina 1:04:20
Right? But it's, I've thought about actually making some kind of a bubble thing that where you can put them both together and put adhesive around it. And, you know, try and keep them in contact without water between them when he's in the pool. But you know,
Scott Benner 1:04:38
yeah, no, I think you got a little too much free time. You might want to find a hobby.
Tina 1:04:43
Yeah, right. I have free time.
Scott Benner 1:04:47
You gotta find a different hobbies what I'm saying. Yeah, so just I appreciate all this. Like we're coming up on an hour. I want to make sure we're not missing anything. Is there anything we are not having talked about so far that you wanted to make sure we did. Uh,
Tina 1:05:01
um, let's see. I think we're pretty good. i The point is, I guess between Omnipod five and loop is, I just find them both to be incredibly valuable. I find I'm, you know, part of the thing with Loop Two is since I am doing the service that I do via loop and learn it, it kind of benefits me to be in that realm, which I fumbled a little bit with my oh, five speak, I think. And that's probably because I'm not as in that realm right now. But, um, and as far as the loop Aman goes, Omnipod. Five is just, you know, I think it's a great, great thing. Yeah. And, you know, the, the Chief Medical Officer of insolate, has told us and told me personally more than once that if it weren't for the DIY community, insolate would be nowhere near where they are on the pod five wouldn't be what it is, you know, and she has said, Thank you, thank you so much. And so I feel like, you know, aside from all the other, you know, reasons to do it to keep pushing with DIY, even though there are some really good FDA approved options, I feel like, it's really great to keep pushing, because innovation is constant, there are some new things coming up in the loop realm that are going to be really helpful to people.
Scott Benner 1:06:38
Tell me about,
Tina 1:06:40
well, actually, there's a new there is a section, it's on the loop and learn website, it's not in the docs, because it's looping, learn specific, but it's a it's a development, little development section in the customizations section of the build, section. And there are three new things in there. There's, I get this, I get this wrong, but it's glucose. Um, let me get in my app, and I'll see glucose base partial application factor. And that allows and that one has been pushed to dev actually, to the dev branch, that one allows, when you're in auto Bolus, it starts ramping up the amount of starts at a lower amount of insulin Bolus. And then it ramps it up as your glucose rises, instead of it being a constant 40%. Or the constant 17%, that Temp Basal offer offers. There's that one. And then another one that's been pushed to Dev is the integral retrospective correction, which actually uses more information, looking back as to what you know what happened. And it will affect what it does from there with that interesting. And then there's also one that's called profiles, which I'm super excited about this one, it allows you to set up a different profile, or different profiles, just like right now, you probably have one profile set up on the phone. But you can duplicate it, and then change some things and then say this is to you know, this one is the main one, this is Tuesday, because Tuesday is you know, this activity that I need to change things for and and then you can just choose to your profile, when you need it nice instead of it's like it runs constantly, instead of setting on an override.
Scott Benner 1:08:46
Wow, that's very cool. I love that. Yeah. When do you think we see all that?
Tina 1:08:51
Well, the first thing that I told you about have just been pushed into dev, I think on the 23rd. And then I'm not sure about this one. But I think once people are trying to in dev a lot. There are a lot of people that are using these already. And when they see it be stable, and Dev and see that it's what they want. They'll push it to the main loop pool.
Scott Benner 1:09:13
So that'll happen in loop three. Yes, yeah.
Tina 1:09:17
Well, I say yes. There are things that happen that make a leap from Loop Two to loop three, and there will be something that makes a leap from loop three to loop four is probably not this, but I can't be sure. Yeah,
Scott Benner 1:09:30
it's interesting. All right, cool. Well, yeah, way to figure out a way to timestamp your episode to get it moved up in the in the player Good job. Got yourself out way, way ahead. That's a that's very exciting news. I can see the value top my head for the different profiles 100% and the ramping up is a big deal and also being retrospective. I mean, all this is good information, right because you make I'm assuming the retrospective apart is, it's going to be able to say, hey, two hours ago, you made a pretty big Bolus. And you know, you said there were 80 carbs here, but we're still 200. So I can't just assume this is all going to be okay. I gotta be more aggressive. Is that the idea of that?
Tina 1:10:14
It is expected to be more? Oh, well, I haven't tested it yet. But those that those that have say, Yes, it does do a better job with that. And if your settings are right, it could be more aggressive than you want. And right now I have the the glucose. It's funny, I remembered the name is an acronym, based on another acronym, an acronym that I'm familiar with. And then they changed the acronym on me. So I stumble, but it's glucose based partial application factor. And that one we started using on Saturday or Friday. And I'm wanting to see what that does. Yeah. Before I apply the next one.
Scott Benner 1:11:02
Good. I can't wait. I love it. I have people who helped me, I am going to tell you I'm inept at loop, for the most part, like the back end stuff, like the setting it up and the, you know, that stuff. I'm, I don't know, my brain doesn't just work that way. But people are always very kind and helped me.
Tina 1:11:20
The kindness of a community, the people in the community is, I mean, I've never seen anything like it. I've never seen anything like it. And I've never had occasion and need anything. But truly, you know, people in this community are just astoundingly giving. And
Scott Benner 1:11:40
I agree. Yeah, I can't tell you I'm in that includes you. Oh, stop. I mean, listen, I deserve a little help I get the word out about loot pretty well. But I, it's just not like, I'm a good example of my brain doesn't wrap around it. If like if it wasn't for people, I mean, let's be more honest, if it wasn't for the podcast, then people would probably not be as interested in helping, but I bet you I still could find somebody to help. I'm just saying like my brain, like, as many times like, Mike's a great example. Mike's been helping me for a year, right with. And he tells me something and every time he tells me, I think you know what, I'm going to remember this so that I don't have to bother Mike again. And then it comes up and I'm I'm like in a blank panic. I'm like, I don't know how to do this. It's yeah, I don't know what's wrong with how my brain works. But it doesn't Well,
Tina 1:12:35
it's funny because I can you know, we, we have a new, a new way to build a loop that doesn't involve a Mac, we have a couple of new ways to do it. One of which Mike just built, you know, made and dropped on us one time, and that was the remote build amazing. But the the Xcode build on the Mac has been refined so much that it's it's gotten very easy to do. I've built, you know, I don't build super often. But I got so I can build it without help. And I can help other people do it. Which is awesome for me because I want to help people. Yeah, and, um, but the, the, the new browser build that you do on GitHub, which you can do on a PC. I look at I've actually read the documentation for that numerous times. I've edited it, I've you know, the I've made changes to it that that help it be more readable and usable and stuff. I can't do it. But like I I've tried, and I'm like it's just, there's something missing. One of
Scott Benner 1:13:45
the astounding things that's happened in the last year is that there was a like, the app needs to be rebuilt. And Arden was at school 700 miles from here. And Mike was like, yeah, we'll just do this, this this click here. That'll send her an email. Then she just clicks on the email and it just builds the app on her phone. And I'm like, Okay,
Tina 1:14:06
sounds magical. And Magic Mike. Yeah.
Scott Benner 1:14:08
Like I'm like, that's, I'm sure he would really love that. And, and I'm like, you know it now I actually have an episode with Mike recorded. I'm gonna put yours out first and then I'm gonna put his out and I'm gonna call his Magic Mike. Tell him just to mess with him.
Unknown Speaker 1:14:26
And oh, get in trouble. Yeah, but
Scott Benner 1:14:29
I swear to you as it's happening and like, that's amazing. And then we went to do it again. And I just, I'm like, I know there's a way to do it. I don't remember it. And I always feel like he's looking at me like, you idiot. Like, oh, no, but he's Mike is so lovely. Yeah, I such
Tina 1:14:45
a kind just, he's such a kind con person in such a cool person. And, um, and patient and he you know, he has a degree in Computer stuff. And that's one of his gifts, you know? Yeah. Wonderful. I have I have another another guy who will remind you of Mike a bit who I'm going to send your way to, um, that I think you'll really like.
Scott Benner 1:15:14
Okay, wonderful. I love these conversations. So I appreciate this one to you today and the one that I had with Mike and God who like just have on recently that did such a good job of talking about moving from loop to Omni pod five. John FOSS on John. Yeah, well, his episodes terrific.
Tina 1:15:32
It is terrific. Yeah. He's, he's like a savant savant stage.
Scott Benner 1:15:37
I mean, the way he talks about it is just very clear to me. And yeah, that's a skill in itself, right? To be talking about something so technical and to make it feel accessible while you're talking about it's really, really a skill.
Tina 1:15:53
Yeah. And he, he's, um, his daughter is mostly managing on her own now. And that's what we're moving to we've, you know, Reese's 13, as I said, and so I'm not, you know, not pushing for him to be independent anytime real soon, but we're working towards that.
Scott Benner 1:16:16
Oh, I'll tell you right now that aren't artists, like, she's independent with it. You know, like, I'll help her sometimes. Or I'll send her a note. I'll be like, hey, you need to, like, you know, you gotta be more aggressive here. Whatever you did two hours ago didn't work or like that kind of stuff. But like she, she handles it. Like, even the other day. She's home now. And I walked into her room, and I was like, hey, you need to she's like, I got I got it. I'm like, okay. That's cool. That's really cool. That's great. So I bet you're
Tina 1:16:45
glad to have her home.
Scott Benner 1:16:46
I really am. I would like it if everybody came home, and we just pretended it was 10 years ago. We lived here forever, but I don't think that's gonna happen. So that's how I feel to get something. Okay. All right, Tina, thank you so much for doing this with me. I really appreciate it.
A huge thank you to Tina for coming on today and sharing her story with us and talking so much about loop and algorithms. I also want to thank cozy Earth for being a great sponsor this year, they're still with us because you guys are going to cozy earth.com and using the offer code juicebox when you make a purchase, so thanks to them. And thanks to you. Let's also thank the place where Arden gets her Dexcom and Omni pod supplies from us med go to us med.com forward slash juice box or call 888-721-1514 Get your free benefits check today. And once you know everything's good to go, you can get your supplies the same way we do from us summit.
The after dark series from the Juicebox Podcast is the only place to hear the stories that no one else talks about. From smoking weed to drinking with type one perspectives from both male and females about having sex with diabetes. We talk about depression, self harm, eating disorders, mental illness, heroin addiction, use of psychedelics, living with bipolar, being a child of divorce, and honestly so much more. I can't list them all, but you can by going to juicebox podcast.com. Going to the top and clicking on after dark. There you'll see episode 807 called one thing after another episode 825 California sober. Other after dark episodes include unsupported survivor's guilt, space musician, dead frogs, these titles will make you say what is this about? And then when you listen, you'll think that was crazy. juicebox podcast.com Find the after dark series. It's fantastic. If you are a loved one has been diagnosed with type one diabetes. The bold beginnings series from the Juicebox Podcast is a terrific place to begin listening. In this series, Jenny Smith and I will go over the questions most often asked at the beginning of type one. Jenny is a certified diabetes care and education specialist who is also a registered and licensed dietitian and Jenny has had type one diabetes for 35 years. My name is Scott Benner and I am the father of a child who has type one diabetes. Our daughter Arden was diagnosed in 2006 at the age of two. I believe that at the core of diabetes management, understanding how insulin works, and how food and other variables impact your system is of the utmost importance. The bold beginning series will lead you down the path of understanding. This series is made up of 24 episodes, and it begins at episode 690. Get your podcasts or audio player. I'll list those episodes at the end of this. To listen, you can go to juicebox podcast.com. Go up to the menu at the top and choose bold beginnings. Or go into any audio app like Apple podcasts, or Spotify. And then find the episodes that correspond with the series. Those lists again, are at Juicebox Podcast up in the menu or if you're in the private Facebook group. In the featured tab. The private Facebook group has over 40,000 members. There are conversations happening right now and 24 hours a day that you'd be incredibly interested in. So don't wait. So don't wait. Check out the bold beginning series today and get started on your journey. Episode 698 defines the bold beginning series 702, honeymooning 706 adult diagnosis 711 and 712 go over diabetes terminologies in Episode 715 We talked about fear of insulin in 719 the 1515 rule, Episode 723 long acting insulin 727 target range 731 food choices 735 Pre-Bolus 739 carbs 743 stacking 747 flexibility in Episode 751 We discussed school in Episode 755 Exercise 759 guilt, fears hope and expectations. In episode 763 of the bold beginning series. We talk about community 772 journaling 776 technology and medical supplies. Episode 780 Treating low blood glucose episode 784 dealing with insurance 788 talking to your family and episode 805 illness and ketone management. Check it out. It will change your life. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast
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