#965 Bumper Bowling
Anastasia and her daughter have type 1 diabetes.
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Scott Benner 0:00
Hello friends and welcome to episode 965 of the Juicebox Podcast.
On today's podcast I'll be speaking with Anastasia she has type one diabetes and sodas her daughter they were actually diagnosed pretty close to each other. A lot of today's conversation wraps around looping and other algorithm based pumps. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. If you'd like to save 40% off of your entire order, you can do that at cozy earth.com with the offer code juice box, you can get a free one year supply of vitamin D and five free travel packs with your first order at drink ag one.com forward slash juice box end and my friends check this out. There is an entire group on Facebook 40,000 People type one's type twos Lada everybody, caregivers people living with at Juicebox Podcast type one diabetes on Facebook, it's a private group, you're going to love it. This episode of The Juicebox Podcast is sponsored by Dexcom, makers of the Dexcom G seven continuous glucose monitor, head now to dexcom.com. Forward slash juice box to get started or to find out more. today's podcast is also sponsored by touched by type one, and I'm going to be at their next big event coming in September. Check it out at touched by type one.org.
Anastasia 1:59
Hi, Scott. My name is Anastasia I have type one diabetes. I feel like I'm in a meeting. I have type one diabetes, and I have a daughter with type one diabetes. She's 19 years old. And she got it at the age of five. And I got it one year later.
Scott Benner 2:23
Oh, so your daughter went first? How old? How old? were you when you were diagnosed?
Anastasia 2:30
Hello was I like sort of 3938 30 night? Yeah, definitely not a juvenile.
Scott Benner 2:39
39 So Right. She was five. But how? How long ago was that? No, she's 19 I can do it.
Anastasia 2:48
You can do it. Yeah.
Scott Benner 2:49
- How long to carry the one. That's eight. Zero as eight years ago. No, no, no, I'm getting it.
Anastasia 3:00
Bad man. It's like Tory teammates. 2018 years.
Scott Benner 3:06
Yeah, I didn't finish my equation. My goes into my goes into his like, 35% and I thought oh, I'll just jump ahead. But okay, so 2008 She's diagnosed the next year too. That's fine. You're diagnosed? You got it. Anyone else in the family? Nope. No. Well, I
Anastasia 3:23
have nobody with diabetes. I have a son who's 21. And I have a very nice husband
Scott Benner 3:30
was very
Anastasia 3:33
just like him a lot. Recently empty nesters. And we're having fun. So I find
Scott Benner 3:40
Oh, I see you're the foreign. This has rekindled?
Anastasia 3:43
Yes. Yes. Although I never enkindled but yeah, that's that's how it's going.
Scott Benner 3:49
That's lovely. I have somebody in the neighborhood who pushed it. A lot of kids through life. And then like the last one left and the husband just went with it. It looked like
Anastasia 4:04
Yeah, I think that's pretty common. So we dodged that bullet.
Scott Benner 4:08
Your story. Your story is much nicer. Or they're paid do me a favor. The microphone that's on the cable, like try to keep it away from hair or like lapels or things like that. Got it. Yeah.
Anastasia 4:24
Are you picturing me in a big 1970s lapel?
Scott Benner 4:27
No, I was thinking more of like a powdered wig and a big fluffy front and now it just wouldn't touch something that scrapes that's all got it. Got it. Okay, so it's interesting so there's four of you in the family you obviously made it a you know a fair amount in to your life. Daughters five is there any other autoimmune stuff in your family line?
Anastasia 4:51
There is not and but now I have Kashi motos look at you. Yeah, yeah. So that arrived.
Scott Benner 4:58
Hello. How'd it How long after the diabetes?
Anastasia 5:03
Do you know I limped along with that? I think for a couple of decades, I can remember getting a blood test in my 20s. I don't I can't even imagine why. But seeing that, I don't know anything about this stuff, but it was like auto or antibodies, thyroid antibody. And I remember it was like, I'm fully making this up. The range should be between five and 15. And mine was like, 380. And I remember asking, like, what is this crazy out of range? Rep, like, what does this have to do with anything? And they're like, Oh, nothing, it's fine. Oh.
Scott Benner 5:35
Where are you in an alley behind a Dunkin Donuts? When this?
Anastasia 5:38
Yeah, no, I mean, I, you know, I went through I had two kids, I've had good medical care, I think, you know, doctors used to look at that, that and that probably it was like, there are no entire episodes on this. But like, probably that one most generic marker was like, Okay, enough for them to just say next.
Scott Benner 5:56
Yeah. In range. It looked to them. Right,
Anastasia 5:59
right. In bad range, but in reach. Yeah. So I mean, my diagnosis of Hashimotos, I had to go through like a Chinese medicine person, I couldn't function. But I thought, well, I'm tired. And my kid has diabetes, and I have diabetes, and you can always explain away symptoms.
Scott Benner 6:17
At this stage, I feel like this is going to be fun. You went to someone for a Chinese based metal medical idea or an actual Chinese person?
Anastasia 6:29
Well, she is actually from Romania, and she has many degrees in Chinese medicine and sort of acupuncture and all of that stuff. But let's just say I took the naturopathic route to somebody saying to me, hold on, this is what's wrong with you. And then she linked me to a general practitioner who took the right blood test, but if not for her, I would never, it's not like she's medicating me. I'm on like, you know, genetical Synthroid. If not for her, I wonder how long, normal doctors would say, Yeah, that's fine. Good enough.
Scott Benner 7:02
So you found a Romanian person practicing traditional Chinese medicine, and you got all straight? You got it perfect. Makes total sense. But you think you did that for decades? Oh, yeah. Okay. To what I mean, what did it do to you to have it that long and not treat it?
Anastasia 7:20
I couldn't really say, you know, I'm a person. I don't really look back. I'm like, Okay, I'm glad we figured that out. Moving forward. I just know, there were, you know, the symptoms, the tire the digestive stuff, I just had a lot of stuff that I was like, Oh, I guess I'm just made this way that I
Scott Benner 7:38
was there any issues or anything that stuck with you afterwards, weight gain that wouldn't go away or anything like that.
Anastasia 7:44
That particular part of it was never a problem for me. So I think it also contributed probably, to them being like, now you're fine. You know, I'm sort of I'm like, normal, and I've always had been. So that specific one is, like the obvious one, but lots of other stuff that, you know, it's just always as I said, like, so easily explained way by other factors in one's life at any stage. You know,
Scott Benner 8:08
we're those things cleared up by the Synthroid.
Anastasia 8:11
Yeah, a lot of them like I didn't know I could wake up and feel that I was rested and move through the day and yeah, they were, they were and when they try and wrestle away my Synthroid, I cite like the devil, because they want to give me generic and I tried to go down that route.
Scott Benner 8:26
And it just doesn't. You know how crazy you brought that up? Arden is back home from college. She just got home the other day at but for the last five days that she was there, she's like that I ran out of Saito mill. So Arden takes terrassen which is just a different brand name and then Synthroid and she also takes Saito nos, which takes t 43. And I said, Okay, well, you know, can I get it sent down there to, you know, a pharmacy, she's like, I'm so busy with finals and I don't think I'm gonna be able to go get it. So can you just, you know, pick it up and have it at home. So she went five days without it plus a day of transport. And I said, You have no idea. I drove 14 hours. And then at like three in the morning, I slept from three to five in a hotel. And that was not easy to find. And then I got up at eight, took a shower, drove three more hours, picked Arden up a two and a half more hours picked Arden up, had to you know, take all of her stuff down to the car and help her clean out a room and everything. Then we just drove straight home. So I think we left it two in the afternoon, and then arrived home just a few minutes before 4am. So, so five days plus that trip. And Arden hadn't had Saito Mal, and as we're riding home, she's like my wrists are achy and my knees are starting to hurt. And you know, she even said like my stomach seems like everything started to like get away from her for five days of not taking it. So I said no, don't worry. I got it for you. As soon as she got home for in the morning, I'll tell you if you want to know what it's like to have an autoimmune disease, for in the morning after that trip, I had driven about 28 hours of like the previous 36. And we gotten to the house and I was like, Hey, here's the pill, like, take it, you know. And we looked at it, and they gave her the generic, took it out of the bag, and it was the wrong one. So, so I went to the pharmacy the next day, and I was like, Look, you have to take these back and get her the right lunches, but we won't have them till Monday, which is today. So actually, when I'm done talking to you, I'm taking those generic tablets back and swapping them for the brand name, because she's taking them because it's we're hoping it's better than nothing. But the truth is, is that only the brand name works for That's right. Yeah,
Anastasia 10:44
I think you got two new sponsors for the podcast, just
Scott Benner 10:48
excited to mill in Paris, and they should definitely call actually, I could probably sell the sillies out of that and
Anastasia 10:55
we need the brand only.
Scott Benner 10:57
You guys gotta call anyway. So alright, so that's that. Tell me about your what I want to know about first. I guess I want to know how you manage. Do you are you MDI or are you pumping give a CGM.
Anastasia 11:13
Okay, so right now, both my daughter and I are on Omnipod side. Okay. Make a note. But in all those years, we boy have we had a road of different things like all of us,
Scott Benner 11:24
right. So what did she start with? I guess? So when
Anastasia 11:27
she was five, I think they shoved the mini med on her. And I think pretty much everyone in the practice had that and we really had to fight like the dickens for the first Omnipod which she probably got maybe two years later.
Scott Benner 11:43
Okay, so she went from mini bed to Omni pod and then from Omni pod to distribute a dash or right to five.
Anastasia 11:49
We went to looping. Oh, okay. In between. All right.
Scott Benner 11:54
So then you looped. And then you did Omnipod five. And that's, that's your daughter's path. What about you?
Anastasia 12:01
So I was diagnosed through trial net. So at the endocrinology practice, right after her diagnosis, they asked us on our first meeting, like could you give blood for this thing for science? We're like, Yeah, of course. My son and husband got a letter, I got a phone call. i They said you have two out of four markers. This is a long time ago. This is 2008. At the time, they said to me, so you have a 50% chance of getting type one diabetes. And back then, as I said, like, I wasn't a juvenile. We still called it juvenile. So I was like, well, obviously, I'm the flip of the coin that doesn't get type one diabetes. And so like, Yes, I'm all yours, study the hell out of me. Anything I can ever do. So I went in monthly for a glucose tolerance test, like a four hour one where they're constantly checking me. And it was either six or eight months in a row of doing that, that my blood sugar went over 200, which was at that time, a diagnosis of type one diabetes. Wow. So yeah. So at first, I was in the most deep denial. I just, I couldn't believe it. It was like, it's so weird that it was like embarrassing. Like, no, no, no, no, this is this thing my kid has, you know, not me.
Scott Benner 13:20
Embarrassing, because it seemed like a child's disease.
Anastasia 13:23
No, it's really a weird thing that I have a hard time explaining. But like, we really rallied around my daughter. And we got super involved in JDRF, we got super involved in advocating for education about type one, and it was like her thing. And then it was like, Oh, and by the way, I have it too. And it was also such a shock. Like I had never, I honestly had never heard of type one diabetes, there was a vague understanding that there was some kind of diabetes for old people, something to do with oatmeal. So I really had no idea about it. So there was such a big learning curve for us. And we're kind of like, do it people. So it just felt like it was her thing. We had a big walk team that was like, you know, yeah, 100 people. And it was she went to Washington DC with JDRF. She met President Obama in 2009. It was like one of those things. And I was completely silent about my this whole path toward the whole trial net thing I just never told anyone, obviously, except my immediate family. For reasons I couldn't really say but I think also I truly I was in actual denial. Like, no, I've lived my whole life. Like I do not have this thing. And then people would say, ultimately, when it all came out, like, Oh, so you have this your whole life. It's so sad. And I'm like, That isn't how it works. I didn't you know, I'd be dead if I had this when I was five. Right? You know? Well, it's just it's a lot of factors.
Scott Benner 14:53
I think I understand you had you knew about the oatmeal, diabetes, but you didn't know about this one. I love it. I don't even know what you mean. aim is that the oatmeal diabetes, but it's But moreover, that you guys threw yourself into this supporting your daughter through these causes. And then suddenly, it's you too, and you're not wanting to encroach on this thing that you've done for her.
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Anastasia 16:57
is I think that's it.
Scott Benner 16:57
But it's yeah, it's hard to put into words though. It's interesting. Yes. Okay. Well, that's fair. So, okay, so we oh, by the way, I don't think we're currently in a relationship. Meaning I'm not getting money for this. But still the link works, trial net.org, forward slash juicebox. If you want to use trial net, it's free. And you know, they'll test your family and all that stuff. So very good way to find out if you have markers for type one, getting past that. You start with so you've seen your daughter on a pump when you get an insulin pump when you get diabetes, but you're also sounds like you're trying to avoid being honest that you have diabetes. So how do you manage coming out of the gate?
Anastasia 17:41
So at first, I think I was on one unit of Lantis over a 24 hour period. So right so basically, we just slow walked my pancreas into extinction. And it was it was a slow process. I don't think I felt like, Okay, if I eat one great, I need to give a shot. So those aren't shots for a long time. I think it probably took almost two years.
Scott Benner 18:09
So So trial in a way that allowed for a little bit of support from a Basal insulin to help you out for the death rattle years of your pancreas.
Anastasia 18:23
Absolutely right. And also in the past 14 years, I have met so many adults who were diagnosed in adulthood and who were mistakenly diagnosed with type two, and really ended up in crisis. So for that reason, I'm very grateful for TrialNet because, like I said, I just kind of walked through it quite easily. If you're,
Scott Benner 18:45
if your daughter doesn't have diabetes, you could get misdiagnosed as type two, they could put you on Metformin that could go on for years before you find out what's really happening. Yeah, right, right. Okay. Okay. So eventually you go to a pump.
Anastasia 19:00
So, so I went to a JDRF meeting in the city. And on my way back, I listened to diabetes, concierge shout out to Katie De Simone. And I honestly think I pulled over and I was like, hold on. I think I could do this. And 100% of my thinking was for my daughter's behalf like I was still on MDI and I was doing absolutely fine. So I embarked upon the building of glue, which I cannot begin to express how far from my wheelhouse computer science is like, I'm a writer. I'm a creative director like, that is not my forte. But Katie did that advent calendar, it was literally like day one. Update your Mac, okay, close the Mac and go have a cup of tea. It was so brilliant and accessible and she was a mom of type one and I thought, okay, come on. I can do this very slowly over the course of the summer. I built it. And I had somebody's computery child, like 13 year old come over to help me at the very last step. And when I did, I realized, hold on, I've got this code in my laptop, I had a lot of pods. And I realized I can just put myself literally, you just, I mean, you remember, it's like the play button like play. And it arrived on my phone. And I thought, if I don't do this, myself, I'm never gonna be able to help her with this. And she has zero interest. She, if I just said to you that I am not computer math techie. She's the only person born in you know, 19 years old, who is worse than my mother on technology, because she is truly an artist like she is in art school. And she's absolutely one of those special people who can create a world of art and beauty. But then she's like, Oh, I forgot to go to sleep for a couple days. So yeah. So she had no interest in managing a loop system. I mean, and honestly, neither did I. But I was so motivated to help her. But I was like, Okay, I think I'm on the Omnipod. Now. So I sort of back fit that into my lovely understanding endocrinologist, we loop for a couple and a half years together.
Scott Benner 21:21
So first thing is, I do think it's possible that this younger generation, still has people who don't understand technology, because everything's so automated at this point. Nobody even knows how anything works. I would not feel comfortable betting $5 that either of my children could explain the Wi Fi to you. I'm not I'm not even kidding. So that doesn't surprise me about your daughter at all that that. That seems about right. To me. I mean, also worries me a little bit, not in a big way, and not in a way that I would want people to freak out about. But as we automate insulin pumping, I'm very focused on making sure that people don't forget why it works. You don't mean and how it works and how insulin works. I very much one. I'm not I'm not obviously not saying you should use needle, you have to use a needle for a year to really figure it out. But you, you know, I don't want to get to the point where people are just like, slapping on algorithms and like, oh, it works. And and they don't know why. Because then when something does get funky, they're not going to know how to get themselves out of it. But anyway, automation, automation is great gives, you know, it gives a lot and I just worry about it taking away people's understanding. Anyway, that's that's not the point. So you guys, Luke four, also that you just kind of said diabetes concierge earlier, like everybody would know. But that's episode 227 of the podcast in mid 19 2019. It's three and a half years ago, that episode went up.
Anastasia 22:47
Yeah, yeah. So yeah, I would have followed up that episode. And I don't know if I listened to it, right. Sure. Sure. But yeah, that was it. That was the turning point.
Scott Benner 22:57
Yeah. So Katie, who I don't know what she does now anymore with DIY looping. But at the time she was so just at the core of how people were teaching each other like she did these writings online. And, like you said, like the advent calendar, like walk through day by day to get it set up, because you're programming something, you're using X code to build an app to build an app, and then become an app developer, and then load it to your own phone. And there's a lot that goes on, there's a lot of code. And there's a lot of when you're looking at it going I don't know what any of this means. So they they just step you through it in a way that you kind of can't mess it up. It's it's pretty Yeah, absolutely right. People that that help people like that. Okay, so what did you find for your daughter First, I would think because she had diabetes longer, but how do you describe the getting on loop and what it did for her life?
Anastasia 23:51
Right. So there were great benefits. And I did feel very alone. Like at first, we actually didn't even come clean with our endocrinologist, which is crazy, but it feels like 20 years ago, but you know, whatever. Three years ago, nobody was saying that this was okay to do especially because loop really is not FDA approved. So I ultimately, the endo came around, but couldn't really offer us help. So I felt like I was my daughter's endocrinologist and nothing about that is it's not something that I mind. I just wasn't very good at it. So she did she would still have like, I think if one can get one settings, right on loop, it's heaven. But I just never sit you know, I cannot look at a chart that it just that doesn't mean anything to me. I've heard you say like, give me an ultimate problem and I just have to lay my head down on the debt like it's over. That is how I am about a chart. So you know, helpful people could try and contribute like well, we should be doing this. As you can see, the Basal should Be here. And I just my mind doesn't work that way, my daughter's mind doesn't work that way. And I never felt like I really, like we've got this, you know, she'd have a period of time where things were fine. But also, you know, this coincided with like junior and senior year in high school, her life was never that it was pandemic, like, there was no real consistency, I just felt very alone. And I really struggled with the part where, like, Mark, you know, the whole, the outside device, so the Riley link, or the orange link, which allows the pump to communicate with the phone, we had a lot of connectivity problems, and, you know, she'd be banging that Riley thing up against the pot on her body. And, you know, maybe the bullets didn't go through, maybe it did, but she's still running out the door, that kind of stuff. But worst of all would be like, Okay, I got a pump fail, like, what am I supposed to do now, and the troubleshooting. So you know, and then the rebuild, or we got a new phone, or we got an Apple watch that whole rebuild process, honestly took years off my life. As you mentioned, there are so many helpful people out there, but I just did not feel good about being fully dependent on like, I hope one of these two people who have helped me in the past might be might happen to be online right now, in the middle of their own lives, you know, dealing with their own diabetes, their kids, their husbands, and I just did not like the vulnerability of thinking, you know, this is gonna go down for her, she's, there's a 0% chance she's gonna go on the Facebook group, and search within it for the key word, and then find not 75 comments about how annoying this is, but the one that gives you the answer, and the words around computer science, I just don't even have access to those words. So it would be like pick up the code and do that, you know, like you said, X code or run this script, what what I just know, I don't know what any of that means. So I take your point,
Scott Benner 26:54
I really do. I spent a lot of time trying to explain it to myself and trying to explain to Arden and I agree with you, for the most part, it's just it's if you don't know about it, it's a foreign thing. I just want to kind of clean up the conversation for a second so loop. For people who don't know or listening to this one first is a completely Do It Yourself algorithm, which means that people around the world online, built a program code that takes your Dexcom data and then looks at it makes decisions about what it thinks your blood sugar is going to do. And then tells your pump to give your insulin taken away and make your basil stronger, make it weaker. Like all this stuff. It automates it. It's it's a it's a completely DIY version of automated pumping like now tandem has control IQ Omni pod, as Omni pod five, Medtronic has theirs. But then there's this other one. And I mean, you're hearing Anastasia talk about it, it's you're completely on your own. It's never been, you know, the FDA hasn't looked at it. And you know, it's just been verified by users. I'd say Arden has been well, I mean, Arden has been using loops, since probably a little while after I did that recording in 2019, she took a break for a while he's down on the pod five work great. And she wanted to go back to loop because she didn't like she wanted to have everything just on her phone, which was on the pod five and the phone she had wouldn't work. And she's like, I just don't, I don't want to be carrying two devices. So she went back to looping. So that's, that's what it is. And it's you're on your own. But there are these people online that have done amazing things. Like for instance, now to get the code like you don't actually have to write the code, you don't have to type it in, it's somewhere online, you used to have to find it, download it, then put it into the app. And now it's just a link, you just click the link and it populates the next code. And the next thing you know you're on your way. But to your point, I text somebody every time before I do that, but I'm just like, it's this link, right? Because of the uncertainty like I don't want to do the wrong thing. And would you say it's gotten better over the years, meaning you don't have to rebuild it as much anymore? Things like that.
Anastasia 29:00
Absolutely. I mean, when we started back in the day, 2019 it was literally like x space, right? semi colon. Two more spaces, like we were writing that code and but now you're right there isn't a link and it can be clicked on. And still, the kind of that sort of troubleshooting side of it. Maybe that's even a little bit better. We're a little out of practice now. But that still I found, you know, very daunting and there are a couple of little glitches that kept coming up for her like some timezone thing that nobody can really explain but you have to rebuild and it's not a big deal. But that word rebuild that meant she needed to have my laptop right because she didn't have a laptop I suppose I could have put But see that's the kind of skill I do not have, you know, to have like put Xcode on her own laptop and said plug in and click this link that I just yeah, I didn't really
Scott Benner 29:57
know I know I said art into school. So Arden had a laptop that she had all through high school, and it's on its last legs. And she said, can I get another laptop for college? So we got her one. But we took the old one. And I said, Okay, there's nothing on this, but X code, just stick it under your bed, put it under your dorm room bed. Because if something goes funky, I'm going to have you pull that out, plug it in, and I'm gonna try to, like walk you through it over FaceTime, you know, and, and she was only there for, you know, first semester and there was no problem. So should not knock on wood we didn't have to do. Because it's not, it's never gonna happen it you know, two o'clock in the afternoon, when you don't have anything to do, it's gonna, it's gonna happen at midnight or something crazy like that. And I remember
Anastasia 30:39
every single time, every single time, it's the middle of the night, and I remember the
Scott Benner 30:44
timezone timezone thing, where after daylight savings, I forget what it was, if you change something it would like,
Anastasia 30:57
it's like, if you change the Basal rate, the whole thing.
Scott Benner 31:02
Essentially, and then you have to rebuild it to get out of it. But then eventually, there was like a, some, like, weird shortcut that you could fix it without rebuilding it. And I know if you're listening to this and thinking, I don't ever want to be involved in this, I would completely understand. But it's a I mean, there's probably I don't know if there's an official count, but I bet you that codes been downloaded 20,000 times, something like that, from what I hear people say, I don't know that that means everybody's using it. And that's certainly a small percentage of people who have type one diabetes, but it's still, I think it's one of the nicest things I've ever seen humanity do for its for each other. It's really,
Anastasia 31:41
I completely agree. I agree. And I was, in some ways coming from a place of like, these people have done enough. I don't want to be the person, you know, Facebook, messaging someone at two in the morning, because I'm desperate, you know, but there is such a group of kind, smart people who just keep that afloat and keep improving it. And yes, I really appreciate it's
Scott Benner 32:05
amazing. But here's the rest of it, right? Forget loop for a second algorithms in general use you starting to allude to it or you're talking about it for a minute, but understanding how to use it in settings. It's not, it's they're very important. You can't just put the thing on and y'all go, and it's just going to work, you really do need to know how to use it, you still need to know how to Bolus for your food, you need to understand the impacts of different foods. It's not where it really shines is trying to stop a low and being aggressive about a spike. That I mean, I think you don't realize how much of manual management of type one diabetes, like when people are like it goes wrong, or I spiked or I got low, you don't realize how much of that is happens in the times when you're not looking in the transition times like I ate at 10 o'clock, but I got low at one. But you weren't paying attention from 11 to one. And that's how we, how do I put up with this, my little brother used to get in trouble all the time. And we used to say that Rob had two states of being he was either in trouble, or about to be in trouble. And, and you didn't know when he was about to be in trouble. You knew when he was in trouble. And I think diabetes is like that too. As far as like spikes and falls go it's either happening, or it's about to happen and you're unaware of it. And when it's about to happen and you're unaware of it on a manual pump, then it happens you get low you spike high. When it's trying when it's about to happen on an on an algorithm, the algorithm takes steps when you're not looking to stop that thing from happening. And it's I mean, it that's what and it also when you think about like stability, that's also how it creates stability by getting ahead of lows, getting ahead of highs and taking the wobble the up and down out of that line. It's really amazing. So did you start with you must have if you started that long ago, it was just basil, right? Like the algorithm was using basil to try to stop spikes back then. That's right. Yeah. Yeah. And wasn't perfect right.
Anastasia 34:11
Now, yeah, it was not perfect, but it was better. It was just as you say, it just sort of it was like little guardrails on that grass that I don't Yes. And
Scott Benner 34:20
it's like bumper bowling. It really is. Yes,
Anastasia 34:23
that's exactly what I was thinking. I couldn't think of what to call that the thing that stops you from getting it.
Scott Benner 34:28
Exactly what that's what you're thinking. So even though it's working and you see the like, it's going from right to left or right, the left at least not falling into the gutter. But when they came out with I forget what the first auto Bolus branch was that I saw. And branch is another word like, you know, you heard Anastasia say earlier, like there's words and I don't know what they mean. So I guess coders know that there's like the, I think I'm getting this right. There's the first piece of software that's written I guess that's sort of like the Think of that as the trunk and then some people come in and go this is a really cool piece of software but I would rather it Bolus when I get high instead of increasing my basil. And then they write a branch of code off of that. That includes that. So there was an auto Bolus branch. I think the first one I saw was from somebody named Pete. I think now Arden uses Ivan's I'm not even sure.
Anastasia 35:20
I've been worried about Ivan. Although I obviously like you. I don't know any of these people or where they come from? Yeah. The one that we ended up on was a Otto Bolus branch called free APs. It was like a little.
Scott Benner 35:31
Eventually we got to them. That's where she is now. Yep.
Anastasia 35:35
Okay, I still have it on the front page of my phone. And I and I just it, there it is, but I'm on the five
Scott Benner 35:42
and then. Okay, so then here's the big question. We understand what loop is what it does what it's done for. I mean, a little bit of context, what was very one sealed loop and yours.
Anastasia 35:51
Let me just think about that. Hers has fluctuated a bit, and I'm terrible at keeping records. She might have been in that high sixes Okay, that's fair. Yeah. And right. So she Yeah, so that was an improvement. But she still was having lows. And that really scared her and me and we didn't love that not a ton, you know, but but enough that it was not great for her in that sense. And again, I'm fully aware it's it's down to me in my settings, but I just didn't feel I had the skills or the sport to perfect those settings. And mine, I'm actually pretty sick no matter on MDI. I was like high fives loop. I was about the same. And I think I'm about the same on the five. So I'm just I'm on it. You know, it's easier for me, I'm an adult, I'm not hormonal. I'm not in college or elementary school or, you know, I'm, I'm a little bit steadier. So I'm I probably haven't seen a massive improvement. No, I did have an improvement. I take that back. I did have an improvement from MDI to loop. Definitely. But I couldn't remember exactly what the onesies were.
Scott Benner 37:00
You just said, I'm not hormonal. And I was like, but you were 39. And then I added the 14, two and I went, oh. Yeah, I see. She's not 39. She's more like 53. Yeah, big difference, by the way, getting rid of the hormones. And if you're not eating a bunch of fatty food or processed food, it also makes things smooth. Right? Right. Okay, so everybody's having success with loop. It's doing well, what makes you I mean, listen, I don't know that I need to answer ask this question, because I think we've answered it while you're talking. I was gonna say what made you switch to Omni pod five, but I think you're gonna say that it's easy.
Anastasia 37:40
The desperation of mom, my loop failed. Can you fix it? You know? So, yes, that and of course, I'd been stalking all kinds of automated insulin delivery systems. And I was looking forward to Omnipod five coming out. And so yeah, especially also it was coinciding with her going to college, and all that intent that entails. So I thought, This is great timing. Let's try it. And I really just put myself on it for the same reason I put myself on loop. I need to know it and understand it to be as effective as I can to support my daughter.
Scott Benner 38:15
Just a good mom. Yes. It's called a humble brag. When you say that you're like, I'm just kidding. I would have done the same thing. I think that's a great idea. Like learn it for yourself. So you can teach it to someone else. Yeah, did you? So you went first?
Anastasia 38:28
You know, she actually went first because I pushed for her to get it. And then I realized, like, Oh, crap, I should probably do this too. And I wasn't I didn't love having to rebuild for myself any more than I did for her. So somehow, she got hers maybe a month before me that we could do another episode on the almighty insurance issue that continues. Thankfully, we're in a good place at this moment. But anyway, yeah, so she had maybe a month. I mean, she probably started in late June. And I caught up with her about a month later.
Scott Benner 39:00
So what was I mean, and that's what we're gonna talk about the rest of the way is the transition. So what was it like? It? Was it different for both of you? Was it similar? Did you have the ability to listen to the episodes I did about it about starting on the pod five before you started, were you starting more blind havoc, though?
Anastasia 39:19
Right. I started before the episodes. So of course, I listened to them, but I had kind of already been going. I did the training. I read that big manual. I felt, you know, we were so familiar with the Omni pod that it didn't feel, you know, it wasn't a massive transition. You know, a lot of information has come out since about starting more aggressively. I didn't really know how to do that at the time. You know, there was it was on the early side. It was actually it was early, so I didn't I there really wasn't anyone to guide us on that setup, including our endocrinologist to be honest So I would say that when she started, we had that which we see in all the forums like, great. So she said 140 all day, which was not really what we were looking for understanding that you give up a little bit of precision control for safety. I was considering, like, do we do a hard restart and be more aggressive about her input of basals. And then the universe decided for us because her PDM failed. So she had to get sent to new one. And we did start a little more aggressively and, and it's better, it's better. It's exactly it's our bumper bowling. You know, it's kind of tightened it up. But what is different for her, because she had had some bad lows that were like, you know, made her very, very skittish about getting though, is it it has really helped with the lows, and I didn't have a lot of lows before but I did absent, like I almost forget that what getting low is like, it's not that it never happens. It's more effect. I was thinking last night going to sleep like Oh, I wonder what we'll talk about. And I'm gonna tell him like, I have not been low. I can't think the last time I was low, and then yep, I was alone. Last night. Yeah, yeah. So it's going great. I will concede that perhaps it's not as tight but she hasn't had a blood draw a Wednesday yet or she did but her appointment isn't until I think this week to come. So I don't have an official a onesie for her. But I'm gonna guess it's pretty good. It's pretty good.
Scott Benner 41:37
I do have it on like, clarity. You know, about where do you think it'll be? Oh,
Anastasia 41:41
you know, I haven't looked at her clarity. It's going to be it's going to be in the sixes. That's great. Let's put it that way.
Scott Benner 41:48
Yeah, in the sixes, not fighting with Lowe's. Not not being an app developer. It's pretty good. Good. I mean, you know,
Anastasia 41:59
what I was going for? Yeah, go and live your big life in college. And also, I did not have type one diabetes. When I was in college. I can't even imagine it. Like, if I just think back to any moment in time, when I was in college. Like, was I going to be considering what my blood sugar was? And should I have those cheese fries or whatever? Like, it's, I'm aware that it really is a burden that anyway to lift that burden a little bit? is worth it. Yes. I wish she had a 4.8 a onesie? I really do. But here we are. Well,
Scott Benner 42:33
I mean, what year in college is she even? She's, this is her second year, for second year, in the never ending ride home that Arden and I took together I probably found five different ways to tell her how proud I was of how she handled her diabetes, what school, you know, and it was, it was quite an adjustment. And then maybe just a week before she was back, there was a problem. She had to change transmitters on the G six. And it just wouldn't pair right away. And it happened super late at night. Like to the point where, you know, we're it's like three or four in the morning. And I'm finally like, I got it. And like, you know, go to sleep. And she's like, can I go to sleep? I have a final 11. And I was like, no, no, like, that's fine. Like, go ahead. And you know, and even if she's going to sleep, we're still in the warm up window. So I don't know what's happening. And, and of course, in the four hours that we struggled with it, her blood sugar shot way up. So now we have like a high blood sugar with a lot of insulin with no CGM with her exhausted with me not being able to see your blood sugar. And so I sat up for two hours till like, I don't know, 530 in the morning, I don't even know why I sat up. I couldn't see anything. I just
Anastasia 43:47
Yeah, but you just were ready in case somehow didn't know.
Scott Benner 43:52
She could have been dead already. And I was just sitting there, like, I can't go to sleep. And then it all came back on and you know, I could see what was going on again. And I was like, okay, you know, it's fine. Then she slept and went off the class. And I think she got an A so she did go out great. But that's not really the point. The point is seeing how tired she was. There was desperation on her face. She started like we were FaceTiming she started looking younger. Do you know what I mean? Like, yes, yes. You know, you know, yeah, talking about like, like, She's over there doing this great job for 10 weeks. And in the last three days, this thing happens. And all of a sudden she looks at you like Daddy, come help me. You know, and it's not a great feeling. But there she is. And she did it. You know? Yep. Yep. So anything that makes that better, easier. And I'm on I have to tell you the her backup system ecologist, the Omnipod five, that gets great. It's there and it's ready to go. Because I told her I was like if there's any problem with this, I said we're not going to mess around like we'll bail and you'll go right back on the five that just have to carry the extra you know, the the controller for a while. Yeah, so anyway, Yeah,
Anastasia 45:00
that story, I mean, it just I get all the feels it, you know, everyone listening to this is connected oops, to type one in one way or another and the stuff that we all go through we really are warriors, because you know, nobody outside of our little tribe of type one people could ever understand that that thing you just revealed that we have all been through one version of it or another like on a, I don't want to say on a regular basis, but kind of like that's always at the end of the possibility when you open your eyes in the morning, like what's gonna happen today.
Scott Benner 45:37
It's also not lost on you. While it's happening that I don't know, the last time we had trouble swapping a transmitter. I mean, years and years and years, it just happens every 90 days on the G six here we go pop this one off, put that one on. It just works and works or she doesn't one time in a different place. I watched her do it. She didn't do anything wrong. I don't know why it just didn't connect right away. And, you know,
Anastasia 46:04
technology and things are gonna lit
Scott Benner 46:07
Yeah. And I'll tell you what, if you're listening, I went through all of my knowledge. And I thought, I don't know what we did wrong. I don't think we did anything wrong. I don't know what to do. I went to my own Facebook group. And I was like, Hey, guys, here's what just happened. Like, throw out all your ideas. So I can just read through them and hopefully scan it and find the thing that I didn't do. And it turns out, I don't know why it just worked the next time. So whatever. Just
Anastasia 46:32
whatever. Whatever. getting on with the day. Yeah, moving
Scott Benner 46:36
along. So how are you liking on the pod five? Like, so works for her and her situation? How's it work for you in your situation?
Anastasia 46:43
Yeah, I like it, it is you do have to have the controller, which is an adjustment. And it's a little bit clunky, just saying. But the beautiful thing is you don't actually have to carry around with you everywhere you go like, yeah, it's the pod and the Dexcom directly are talking to each other. So you can go out and do something and you don't unless you're going to want to bow with Yeah, I'm I think it's probably keeping me again, pretty much the same as loop I was a little tighter. And I'm currently again, going through all the Facebook groups, I'm currently trying to really be on it, like once an hour, see what my trend is, and just correct and have the algorithm learn. So I'm in the middle of doing that. But yeah, I'm happy with it
Scott Benner 47:28
good. Well, I mean, not that you're about to go away to the home and assays or anything like that. But But But 53 alternative, the 63. And I think that this is the way like I said, I want art and to get to Omnipod five, at some point, like I want her to be on it, I want it to work, and I want it to be easy for because she's going to live through her 20s and 30s and 40s. And, you know, with this thing, and, and I also think about people who are older, their 60s and 70s. Like maybe they could get this great control, save them from the lows really extend their health and their life without having to understand a thing. So that's the other side of the automation. Like, there's plenty of times in life when it's easy to say, well, it's doing something and I don't understand. And because of that I might be missing out on something. But you got to put yourself in that other situation when you're either too young to understand or too old to understand that the rest of that doesn't matter. Because it's not like you're going to figure it out. So yeah, so let's just put the bumpers up and keep the ball out of the gutter. Yep. Yeah,
Anastasia 48:32
I agree with that. Good. That's, that's
Scott Benner 48:34
where I'm at with all this. I don't think we I'm sure people quietly worry about when their kids get older when they get older. But I've spoken to enough people now in their 50s and 60s and you know, that have diabetes and from the meter screen being hard to read to I don't know how to draw, like what happens when I get confused and get myself 10 units instead of one unit or something like that.
Anastasia 48:58
Right? You know, a lot of room for error. You don't think
Scott Benner 49:01
about stuff like that. But the other day, my mom moved into a new place. She's 80. And my brother went over to check on her. And he says he got troubled
Anastasia 49:09
Brother, no getting in trouble.
Scott Benner 49:12
The troubled brother's a nice responsible person now, by the way, but when he was a kid, as a kid, he would have been able to give any anyone a run for their money. But in fairness to him, we did throw him outside naked once so I don't know what we did. You know, but But point is so my brother gets to my mom's house. She's got this like lounge chair. My mom's not in her room. She's out eating, you know, down at the cafeteria having food. But the lounge chair is completely reclined. Still. Oh, so my brother says, Mom, why is the chair like this? And she goes, I don't know. And he says, Well, how'd you get out of it? She goes, I don't know. So if at a moment you're going to be at one day and somehow trust me she's not flee to foot somehow get out of a Barco lounger without folding it up and then not remember how it has Ben, I don't think you're gonna be building your loop.
Anastasia 50:02
Exactly. Exactly. Did you Pre-Bolus and look through your graphs for that? Yes bike? No, I don't think your mom did that she rolled out of the Barco
Scott Benner 50:12
my mom. Exactly in that scenario, if she had type one diabetes, there'd be a person who would come put a new pump on for settle up, put in the carbs, and keep and if this if Omnipod, five or control it, whatever, doesn't matter if any of these algorithms can, can fairly, effortlessly keep you in the middle. I mean, it's a big deal. I'm telling you, we are at the precipice of something amazing. People living through it right now don't even understand it. It's, it's a savior for people with type one and for anybody using insulin.
Anastasia 50:46
Right. Well, I think that the progress that has come from me putting on a headlamp, and going into my daughter's room when she was five, and pricking her finger every two hours, like that was in our experience, and now, it's just gotten so much better. I have to believe it'll continue to get better and better.
Scott Benner 51:05
That's leaping forward. I know I'm, I'm imagining you with a miner's hat on but it was just it was just, it was like it was like a, like a, like a stretchy cord that were on your head. Yeah,
Anastasia 51:16
it was my son's from camp. Yeah. I just didn't want a
Scott Benner 51:20
good idea. I mean, I take my phone. I turn the flashlight on. And then I flip the phone upside down and put it next to her sort of sort of like illuminates the space.
Anastasia 51:34
Okay, that's my move. Good one. Yeah. I like the headlamp better on this thing.
Scott Benner 51:38
Have you ever dropped her phone on them while they're sleeping?
Anastasia 51:41
Oh, I've done it all. I've done it all. I once tried to change her pod while she was still asleep as she like woke up. Yeah, we've all done crazy.
Scott Benner 51:50
I've bounced that old PDM off of her head one time the big. shot her in the face with like, juice boxes so many times. Like, you know how? Oh, yeah, the pressure changes in them and it squirts. I know it. Well. I know. And then if they don't wake up, you're like trying to mop it off their face. But if they do wake up, they're like, What the hell is happening? And I'm like, I'm sorry. I like spilled juice on you and mopping it off. And yeah, but I've dropped my phone on her like, you know, they're heavy click clunk. Centerstone. Sorry, or, yeah, yeah, well, I've no, I'll tell you one thing I tell you. I'm very proud of this. I have never gotten blood on a bedsheet I'm so careful about that. That's extra, you've never had a squirter nothing. I've never gotten blood on a bedsheet. I would like somebody to bring that up at my funeral, by the way, as a major compliment. Because, you know, you hit sometimes you hit it, and you test, and then it just keeps bleeding. And you know, you're like, trying to rub it like, I don't know what to say. Like, there's something about like, friction here. You rub it a little bit, it stops. Yeah, and I've never done that. I've always been very proud of that. So no blood on the sheets. Thank you, thank you, I'm gonna put it put it my resume along with I just got this great note the other day from a lady she put up a picture of her baby to say how, without the podcast that she wouldn't have been able to have this baby. And it was very sweet. So of course, I responded, it would have killed you to name her Scott. It's a girl and everything. I still pressured her about naming the baby after me. And people are laughing and everything. And then this other person comes in to say that because of the podcast, they are getting ready to try to have a baby. And I said, I responded, I'm not very like you understand it's I'm not very good at being like, Oh, thank you. Like, you know, I'm just so I said to that person. I'm gonna put on my resume, quote, responsible for people having more sex. I said I think that'll that's a nice legacy to leave behind.
Anastasia 53:52
Yeah, that goes right next to your no blood on this. Oh, no, I don't like you
Scott Benner 53:57
don't like that. You don't like those two, like the commingling of these ideas? I do all I know is one of you. I almost cursed one of you have gotten a McKidd Scott before I'm done with this podcast and make it the handsome one. Don't pick the you know when it comes out. You're like, Oh, not that one. Like I want the real handsome. It's all well, that's gonna be tall. Actually, I don't want anybody to name a baby after me. It happened to art. So somebody somebody who listens named a baby Arden. Oh,
Anastasia 54:25
but Arden is a nice name. Let's not put the pressure on your daughter that it was after her. Well, another
Scott Benner 54:29
woman to say that she named the baby after. Arden did not handle it. Well, by the way. She's like, tell your people, which is always the thing. She's like, not to do that again. And I showed her the baby. She's the baby's cute. I was like, okay, she's like, but come on. Nobody will know. Don't worry about it. Anyway, have we not talked about anything that you wanted to talk about? I want to make sure we don't miss anything.
Anastasia 54:53
I just knew it would go free flow exactly where it should. It's excellent.
Scott Benner 54:57
You were great. You're very easy to talk to I appreciate that.
Anastasia 55:01
You too, although of course you already felt familiar to me. So kudos for your style and skill. Oh, no, it was great. I really enjoyed it.
Scott Benner 55:09
Thank you. I see what you're saying. Really? I'm the one to be congratulated. Here. You are. Yeah. Because I didn't know you. And I did. Fantastic. You do? Excellent. I'm still fighting the end of my COVID cold.
Anastasia 55:22
Oh, I didn't know you had that. I didn't hear that at all. Oh, my
Scott Benner 55:25
God, you have no, it was just this whole time, this COVID thing, when did it start? 2019 Whatever it was, and never got sick. And listen, my job's indoors. My wife was able to work at home. My kid came home from college, like, you know, we were careful stuff like that. And you get the vaccination going on yours. Like no, COVID like to the point where I actually said to somebody, I, this is probably what got me COVID. But like a month ago, I said, I wonder if I'm that blood type. They say that like doesn't get it like maybe that's it. I never looked into it. Even I couldn't have cared less. Well. Oh, you know, oh, Kelly goes to away for work. It comes home. Sick. We requested her. But they gave her that freaking there's a drug they give you that makes it go away super fast. But some people get a rebound illness that's worse than the first one. So my wife gets the rebound illness after we released her back in the house because nobody told us that could happen. She infects everybody, me and Cole. Were super, super sick for like weeks. And then the COVID is gone. And I go home. Okay. And then I got sick again. I said, What is this? And I was trying to fight that for a week. And then because you know, in your mind, I'm not 51 In my like, in my mind, you know, I'm like, Oh, I don't get sick. I get through things easy. It'll be okay. But we got some sort of rebound bronchitis from the COVID. So, I'll just say, I mean, I know the worst thing in the world, but Oh, it went on for five weeks. And then we oh
Anastasia 56:53
my god, we finally you sound like you're perfect. Now. I think you've kicked it
Scott Benner 56:57
out of your mind. I'm blowing my nose still. I'm on a I'm still on. steroids, the prednisone.
Anastasia 57:04
Oh God,
Scott Benner 57:05
I don't know if I'm really sick. I could still be sick and just jacked up on prednisone and not know it. I have no idea really. So anyway, when I'm talking I'm so cognizant of the fact that I think my voice sounds different right now.
Anastasia 57:16
Oh, well, it just sounded fun. Good.
Scott Benner 57:21
Oh, that's excellent. What do I want to know? I'm gonna make sure I have everything. You guys started the way you started. Your diagnosis is a really interesting, I didn't ask you about her diagnosis. me yours came because of trial that but how did you figure out that your daughter had type one when she was five?
Anastasia 57:41
Well, it was the classic. We went to see the Hannah Montana movie. My son lost that coin toss. It was just the three of us. My husband was traveling. And in that movie, I think I took her to the ladies room six times. And you know, when they're five years old, I thought well, she's bored with this movie. She wants a little walk to the snack bar to the bathroom. But she actually peed all those times. I thought, you know, after pre K tomorrow, I'm gonna take her to the doctor. She must have a new T i Okay. And that was the one so straight to the emergency room, five nights in the hospital and went home with a new word in our vocabulary.
Scott Benner 58:26
Your husband has to come home from his trip though. He did. He did not get the best of both worlds. No.
Anastasia 58:34
Nope. Came back and we slept in folding chairs in the hospital. Oh, there you go. Yeah. Yeah. Perfect.
Scott Benner 58:42
Absolutely. Alright, so let me let me do this with you. We should have done something like this before ease of use on the potter loop.
Anastasia 58:51
I'm gonna say loop because I'm on my phone anyway. I do a quick to them. And I Bolus however, is of fixed troubleshooting. Omnipod finds all the way
Scott Benner 59:08
up on the pod five, initial setup setup.
Anastasia 59:11
That was very easy, much easier than set up for loop
Scott Benner 59:15
level of understanding you have to have about diabetes to use one. Is there a difference between them? You need more for loop? You need more for loop? Okay, yeah, handling of tough meals, which is easier to do.
Anastasia 59:29
Loop? Yeah. Omnipod five, you can't extend a Bolus. So you are forced to put in Ghost carbs which can result in lows which is why I rarely but got low last night.
Scott Benner 59:43
That is what you ended up doing. So like with loop. If Arden has like a high fat meal. She might say well, this part of it is this many carbs but an hour from now I'm expecting an impact equal to 25 carbs. And then you could actually you can predate a Bolus, like you know your post I guess you posted it. That's what you posted a check. Right? You're right. You're right in. Do people use checks anymore? Does anyone understand this frickin reference? I do you do? We just figured out your 53. So, alright, so for those of you who didn't grow up broke and didn't grow up in the last 25 years, if you didn't have money in your account, you would write a check to somebody like today's the 21st. And I would say to them, Look, I'm not gonna have money in my account till the 25th. So here's a check for $100. But it's dated for the 25th don't deposit it till the 25th. And they can't you couldn't, you couldn't deposit a check that was that had a date in the future on it. It's called and it was called postdating. The check. So you can post data Bolus in loop by telling it Hey, right now I'm Pre-Bolus ng for 50 carbs, but an hour from now or 45 minutes from now, I'm expecting a fat impact equal to 20. Carbs are post date a Bolus, it puts it in the system. And then when the system sees the need, when it starts to see a rise, it goes oh, this is when they said the 20 carbs was going to come. And then the it makes the insulin available to the algorithm to use in a more aggressive way. Did I do a good job explaining that?
Anastasia 1:01:10
That was excellent. And it reminds me that we use that all the time. Like we tend to eat higher fat, lower carb not in a super strict fashion. But that I would I would be like it just reminded me I'd say I think that's about 25 Pizza. You know what I mean? Like meaning that I can't. So we did use that that you described beautifully? A lot. So not being able to use that is a little bit of an impediment to our control. But I also think it is learning. Yeah, you have to remember, and I don't know if Omnipod officially says that we are supposed to do that. So there's like a little
Scott Benner 1:01:52
Oh, you're definitely you're definitely not supposed to do that. But are they're not going to direct you to do it. But you I stopped you a minute ago. You You think it's learning? Do you think it's getting better at those fat spikes?
Anastasia 1:02:03
I am hoping that it will. I haven't I couldn't say that. Like yeah, I you know, I am also not like incredibly consistent, I'm not going to pull out a notebook and eat the exact same grams of food and then compare from today to the next day. I think it's it's like slightly improving. But like I said, I'm doing this kind of blitz I'm trying to correct as often as possible and help it learn. So maybe we'll have to do a follow up. Well,
Scott Benner 1:02:31
I'm very comfortable saying about on the pod five that it is easy to live with an easy to use. And it is a learning system. And you could see it getting better. I did not Yeah, I didn't start with the right settings for Arden. You know, as crazy as it sounds, we use that before I had those conversations to I should probably episode 736-730-7738 I think are to three part on the pod five, like get going thing that I did with on the pod. And this this great, great CD. And she and I like laid the whole thing out. And she she was actually great to interview about it because she had been involved in testing for Omnipod for years. So she had worked with countless families on on the pod five while it was in the testing phase. So she knew so much about it. Right? Had I heard those episodes? Or how Yes, had I made those episodes prior to art and starting. I do know where I would have been more aggressive in the initial setup to
Anastasia 1:03:29
write and I was in the same boat. I've listened to them. But it was kind of past when we've already started. So yeah, there you know, we'll we'll all keep learning. And I hope you'll have her back. And, you know, I'm sure they're getting a lot of feedback from their customers now. So I just
Scott Benner 1:03:45
looked at the first episode of it. And I don't usually say numbers here. But it's been listened to like 30,000 times. Wow. So hopefully somebody is getting something out of it. Besides micro I want you to do okay, or I want Arden to do okay. I want the space to believe in the algorithms so that they spread so that people you know, listen, I don't think this is lost anybody here a very well spoken lady named Anastasia your life is I'm guessing pretty good. And and there are people out there that don't have the kind of support you have. And they don't have. They don't have an understanding. They don't have an opportunity to get that understanding. They might never know what a podcast is. There are people who struggle with insulin all the time. And to think that you might be able to take an omni pod five, and boom, boom, put it on them. And suddenly with very little understanding of anything, having a one seeing the sexes as a magical idea to me. Yeah, yep.
Anastasia 1:04:49
I totally agree. Yeah.
Scott Benner 1:04:51
And it's not going to get to those people. The ones that maybe we could make the argument really needed the most. Until the call More of the community, the establishment, I guess you could call it really sees how to use these things, makes it normalized so that it spreads. Because once you're once a doctor says, Alright, everybody I have on Omnipod five is having a reasonably good experience, I'm going to take the risk of taking this at, you know, this, this person who has not shown a lot of understanding for diabetes yet, or maybe even a lot of motivation, like let me take the risk of putting it on them to see if we can, you know, balance out their health. And it's a long look for me, but I think it's important for people using insulin now and in the future for these things to be well understood. And used, you know. So anyway,
Anastasia 1:05:43
I agree.
Scott Benner 1:05:43
Thank you very much. Well, I appreciate you very much doing this with me. And I want to wish you a happy Thanksgiving. And
Anastasia 1:05:51
Happy Thanksgiving. I really enjoyed it. And thank you for all you do. Oh, my pleasure.
Scott Benner 1:06:00
A huge thanks to Anastasia for coming on the show today and sharing her story. And I also want to thank Dexcom for sponsoring this episode, and remind you to go to dexcom.com forward slash juicebox. Want to get tickets free tickets for the big event coming up in Florida. To see me at touched by type one go to touched by type one.org. And while you're there, check out all the cool stuff they're doing for people with type one diabetes. Don't forget to check out the private Facebook group and the public page both called Juicebox Podcast on Facebook. Thank you so much for listening. I'll be back soon with another episode of The Juicebox Podcast. And if you'd like to hear more about the bull beginning series, just hold on for two more minutes.
If you're a loved one has been diagnosed with type one diabetes, the bold beginnings series from the Juicebox Podcast is a terrific place to begin listening. In this series Jenny Smith and I will go over the questions most often asked at the beginning of type one. Jenny is a certified diabetes care and education specialist who is also a registered and licensed dietitian and Jenny has had type one diabetes for 35 years. My name is Scott Benner and I am the father of a child who has type one diabetes. Our daughter Arden was diagnosed in 2006 at the age of two. I believe that at the core of diabetes management, understanding how insulin works, and how food and other variables impact your system is of the utmost importance. The bold beginning series will lead you down the path of understanding. The series is made up of 24 episodes, and it begins at episode 698. In your podcast, or audio player. I'll list those episodes at the end of this to listen, you can go to juicebox podcast.com. Go up to the menu at the top and choose bold beginnings. Or go into any audio app like Apple podcasts, or Spotify. And then find the episodes that correspond with the series. Those lists again are at Juicebox Podcast up in the menu or if you're in the private Facebook group. In the featured tab. The private Facebook group has over 40,000 members. There are conversations happening right now and 24 hours a day that you'd be incredibly interested in. So don't wait. So don't wait. Check out the bold beginning series today and get started on your journey. Episode 698 defines the bowl beginning series 702, honeymooning 706 adult diagnosis 711 and 712 go over diabetes terminologies in Episode 715 We talked about fear of insulin in 719 the 1515 rule episode 723 long acting insulin 727 target range 731 food choices 735 Pre-Bolus 739 carbs 743 stacking 747 flexibility in Episode 751 We discussed school in Episode 755 Exercise 759 guilt, fears hope and expectations. In episode 763 of the bold beginning series. We talk about community 772 journaling 776 technology and medical supplies. Episode Seven at treating low blood glucose episode 784 dealing with insurance 788 talking to your family and episode 805 illness and ketone management. Check it out. It will change your life
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