Scott Benner 3/8/25 Scott Benner 3/8/25

#1455 Small Sips: Meet the Need

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Estimating carbs and insulin is sometimes necessary—experience helps refine these educated guesses over time.

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Scott Benner 3/7/25 Scott Benner 3/7/25

#1454 Formerly Terca

Cici, 30, has managed T1D for 17 years. After overcoming her needle fears and diabulemia, she switched to OP5 and turned her health around.

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Scott Benner 0:00
Welcome back, friends to another episode of The Juicebox Podcast.

Cici 0:15
My name is Ceci. I'm 30 years old, and I'm from Mexico, and I've got diabetes for 17 years now,

Scott Benner 0:23
nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan. Don't forget to save 40% off of your entire order at cozy earth.com All you have to do is use the offer code Juicebox at checkout. That's Juicebox at checkout to save 40% at cozy earth.com. When you place your first order for ag one, with my link, you'll get five free travel packs and a free year supply of vitamin D drink. Ag one.com/juice. Box. Are you an adult living with type one or the caregiver of someone who is and a US resident? I'd love it if you would go to T 1d exchange.org/juicebox and take the survey. When you complete that survey, your answers are used to move type one diabetes research of all kinds. So if you'd like to help with type one research, but don't have time to go to a doctor or an investigation and you want to do something right there from your sofa. This is the way t 1d exchange.org/juice box. This episode of the juice box podcast is sponsored by Medtronic diabetes and their mini med 780 G system designed to help ease the burden of diabetes management, imagine fewer worries about mis Bolus is or miscalculated carbs thanks to meal detection technology and automatic correction doses, learn more and get started today at Medtronic diabetes.com/juice box. Today's episode of The Juicebox Podcast is sponsored by the ever since 365 the one year where CGM, that's one insertion a year. That's it. And here's a little bonus for you. How about there's no limit on how many friends and family you can share your data with, with the ever since now, app No Limits ever

Cici 2:16
since. My name is Ceci. I don't know if it's easy for you to say. CC, that's fine. I'm 30 years old, and I'm from Mexico. I'm from Korean, which is a small town in the north, but right now I'm living in the South, near Cancun, and I've got diabetes for 17 years now. Okay, Ceci, yes. Like that, perfect.

Scott Benner 2:39
I can do that, probably okay. You would think I could accomplish that, right? 17 years. How old are you now? 30? Oh, okay, you're over halfway. Then, yeah, yeah, you've had it longer than you haven't had it. Do you remember being diagnosed?

Cici 2:57
I do. It's actually kind of a weird story. I think I don't think I've heard something like that. Go ahead, I've always had problems with my weight. You know, I've always been a little bit overweight, especially when I was little. So about a month or two months prior to being diagnosed, I was on a diet with my sister and my mom, so we were all trying to lose weight, and always I would be the one losing like very little weight, like grams. I don't know how to convert to pounds. I'm sorry, that's okay, but they would be losing like one kilogram or a kilogram and a half, and I would be losing like 6600 grams, right? So very little, but consistent. And then I finally reached my weight, and I went into the like, maintenance stage of the diet, and I went crazy, like they let me eat pasta, and I would go into the fridge and take, like, cold pasta and eat it like crazy. I didn't know if it was because of diabetes at that point, but I was eating like with like crazy. I couldn't stop myself. It felt amazing when I ate, and then I felt terrible, right?

Scott Benner 4:09
But were you still losing weight while you're eating like that? I didn't

Cici 4:13
know that, like, I didn't it was a week, so I didn't know yet, but I was eating like crazy, and it was like, No, it was like, two weeks from one wing to the next one, right on the diet. So I would eat like crazy. I was really moody, but I was also 13, so my mom thought, like, she's a teenager, she's just going through stuff or whatever, and my mouth was smelling like, she would say, like, fruit, like, like, fruity, right? And she would send me to the bathroom, like to brush my teeth with. How do you call it? Because, like,

Scott Benner 4:45
baking soda. Yeah,

Cici 4:47
baking soda.

Scott Benner 4:48
How do I get that? It was awesome.

Cici 4:50
I don't know. You're awesome, right? I just lost the word for a second there. And she would make me like gargo with baking soda and things like that, so that it would stop. She would not. Believe that I was brushing my teeth, she was going crazy, and I was going crazy. I was so tired. But then two weeks later, when I went to the next weigh in, I had lost four kilograms. Okay, so that's like eight pounds, I think, okay, something like that, like, for a person who was

Scott Benner 5:20
not losing anything. It's actually, it's just about nine pounds. So, okay, so nine pounds two weeks,

Cici 5:25
and they actually called my mom and they were like, like, they set her aside and asked her, like, are you feeding her? Right? Like, don't stop feeding her just because she reached her weight. And you're like, like, that she's been now, or whatever. And she was like, no, no, she's eating. And she's eating like crazy. We didn't like click then yet, after, I think it was a week later, it was Father's weekend, Father's Day weekend, and my parents took me out to dinner because they were concerned with my behavior and everything. And while we were sitting there, I don't remember what they said I was like in a haze, a diabetes phase. I guess the I would order a pink lemonade, right? And it was a refill, so I would drink it, and I would get another one, and I would drink it, and I would go to the bathroom and get another one. I think I drank like 10. So at some point, I don't know what my mom was saying that she just like, looked at me and was like, shit. I think I know what's happening, right? Is one of my my nephews, he's got diabetes. Oh, okay, and and one of my cousins. So she took me to my nephews house. They checked my blood sugar. It was high in the glucose meter. Of course. We got to the hospital and I got admitted. Right away, my blood glucose was, I think, 1100

Scott Benner 6:52
Yeah, I bet you, after all the pink lemonade, right? I

Cici 6:55
did. I didn't stop. So you can imagine that. I don't know what my a, 1c was, so I'm not sure how long I had it, okay, like that, but it was 1100 at the moment, and they were shocked that I wasn't like past that conscious. Yeah, right. And yeah, that was it.

Scott Benner 7:10
How long do you think that whole process took?

Cici 7:12
I think it was like a month. Okay, probably so

Scott Benner 7:17
pretty quickly. And your mom finally figured it out. She ever tell you what struck the chord. Was it the drinking and the peeing that got her or,

Cici 7:24
yeah, like she she just didn't connect all of the of the dots until that moment. So she knew I was moody, but she thought it was because I was a teenager. She thought I was eating like crazy because I was on a diet and I finally had, like, right permission to eat, right so I don't know

Scott Benner 7:41
Heck of a diet if you were, I think you're double fisting cold pasta at the refrigerator. Yeah, she, she was probably amazing diet. She's like, I think we went too far, right? So I would love that. How much did you actually lose from the diet? And then I

Cici 7:57
think it was like eight kilos. So,

Scott Benner 8:01
okay, all right. So maybe, like 1617, pounds you lost from the dieting. They were like, Okay, that's enough. You did it, right? And then right about that nine, then probably the diabetes was starting, right, okay, all right, what is care like in Mexico versus what you hear on the podcast from America at other places?

Cici 8:20
I believe it's similar, like in like, the stories I've heard from before, like 1020 years ago, I think they're very similar to what I got 17 years ago. I just think here in Mexico, we're a little bit behind right now, like currently

Scott Benner 8:37
behind on technology or medication, or

Cici 8:40
medication, not quite, but I think technology and the the availability of technology here, so we don't have many options. There's only meternic. And at some point the animal, I started with that one, okay, but there's no omnipotent, there's no t slim,

Scott Benner 9:01
what about the direction from doctors? What are you told?

Cici 9:06
I have to tell you that when, when I was in the hospital, I think I was there for a week, nobody told me I had diabetes. So they were just like coming in and injecting me and leaving, you know, and nobody told me what happened to me until I got home when my mom told me. So it's not like with you guys, that I've heard that you go to the hospital and then you stay three days or whatever, and you get a little bit of education. I don't think I got that.

Scott Benner 9:31
Well, Arden was diagnosed when she was two. She's 20, so that was 18 years ago, so it's probably the year before you and she was in the hospital for five days. Okay, so, I mean, but no, like, doctor spoke to you and said you have diabetes, but they told your mom that, though, right. Okay, yeah. Is that cultural? Do you think when you think of a CGM and all the good that it brings in your life is the first thing you think about? I love that. I. Have to change it all the time. I love the warm up period every time I have to change it. I love that when I bump into a door frame, sometimes it gets ripped off. I love that the adhesive kind of gets mushy sometimes when I sweat and falls off. No, these are not the things that you love about a CGM. Today's episode of The Juicebox Podcast is sponsored by the ever since 365 the only CGM that you only have to put on once a year, and the only CGM that won't give you any of those problems the Eversense 365 is the only one year CGM designed to minimize the vice frustration. It has exceptional accuracy for one year with almost no false alarms from compression lows while you're sleeping, you can manage your diabetes instead of your CGM with the ever since 365 learn more and get started today at Eversense cgm.com/juicebox, one year, one CGM. You've probably heard me talk about us Med and how simple it is to reorder with us med using their email system. But did you know that if you don't see the email and you're set up for this, you have to set it up. They don't just randomly call you, but I'm set up to be called if I don't respond to the email, because I don't trust myself 100% so one time I didn't respond to the email and the phone rings the house. It's like, ring. You know how it works? And I picked it up. I was like, hello, and it was just the recording was like, us. Med doesn't actually sound like that, but you know what I'm saying. It said, Hey, you're I don't remember exactly what it says, but it's basically like, Hey, your order's ready. You want us to send it? Push this button if you want us to send it, or if you'd like to wait. I think it lets you put it off, like, a couple of weeks, or push this button for that. That's pretty much it. I push the button to send it, and a few days later, box right at my door. That's it us. Med.com/juice, box, or call 888-721-1514, get your free benefits checked now and get started with us. Med, Dexcom, Omnipod, tandem, freestyle, they've got all your favorites, even that new islet pump. Check them out now at usmed.com/juice box, or by calling 888-721-1514, there are links in the show notes of your podcast player and links at Juicebox podcast.com to us Med and to all the sponsors.

Cici 12:18
I think so a little bit, because I see, like all the community you guys have around type one diabetes in the US, and I don't think we have it here. I think there's a little taboo, even though it's different from type two, and they shouldn't have taboo for type two, either, like, we don't like to talk about it, or we don't like to share that much. So I don't have a lot of friends that have diabetes, or I don't know people who have it, or I do, but I don't speak to them a lot, and we don't talk about that. We talk about like our life. Is it possible?

Scott Benner 12:50
You know, people who have diabetes who just don't talk about

Cici 12:54
it? I don't think you don't don't like, because we do like when someone has something, you kind of know, they just don't say it

Scott Benner 13:02
back channels. We know about it. Okay, all right, your ancestor tells you about it, exactly. Okay. So when you, when you're first diagnosed, you get needles, right, right? You know, in the stuff that you sent me, you said you have a fear of needles, because Arden does, and I don't, we don't talk about it a ton, but hers is, like, aggressive, and I'm wondering what it's like for you

Cici 13:27
right now. It's like, I can do it, no problem. I can actually look like when they're taking blood and whatever. It's fine, but it was very, very bad, like, I would be the kid in in the pediatrician's office running away from the lady that was going to inject me, or whatever vaccine they had to put on me, right with my pants down. So I did. I did have a very big fear. I actually have a funny story about that. When I was 12, right before I was diagnosed, I had an operation on my knees, so it's like a corrective operation, but my dad gave me that cell. Thank you, dad. Your legs are a little bit, I don't know, wonky, and you have to get an operation in the inside of your knee. You get some staples put in, okay, on the growth line of your bone, so that your legs don't grow on the inside, only on the outside. And you get, like, I don't know, they get straight or it doesn't bow your legs, yeah, exactly. Like, it's, it's, it tries to bow them the other

Scott Benner 14:28
way. Okay, so you have a wonky knee, is what you're telling me, yeah, both, both knees. You're trying hard to have your episode called wonky knee. I'm just letting you know we can try that. Yeah, well, we'll see where we go. Okay, so you have this surgery, right?

Cici 14:41
So I have the surgery, but I have my sister had it a year before, so I knew what was coming. My mom watches a lot of base anatomy and, er, so I also thought myself a medical professional, right? So I was in the hospital. I was getting ready. They had to put the the IV right on me, and that was terrible, but it was. Was like, Okay, I had to do it. But I knew they were going to try and put an epidural on me, and I knew what that was, because of great anatomy and, er, and it's like, I'm not like, there's no way, no way in hell, right? But I was 12, like I was a kid, yeah, when I was in the in the operating room, they were like, Okay, we're going to do the epidural. And I was like, oh, no, no. My mom said you could do the little gas, you know, like, the gas, like, put me to sleep. And she was like, really? And I was like, yeah, she said it was fine. And she was like, oh, okay, fine. So they actually made me, like, go to sleep completely. They didn't put the epidural on me. And, like, halfway through the surgery, they went out and talk to my mom. They were like, you know, she should have an epidural because it's going to be really painful later. And she was like, why didn't you put an epidural on her? And she was like, she said you didn't want her to. And she was like, do it right now. Do it right now. You're never going to do it.

Scott Benner 15:53
Not too long ago, you wouldn't tell her she has diabetes, but now she's making medical decisions about anesthesia. Interesting.

Cici 16:00
And I didn't have diabetes, then

Scott Benner 16:03
you were just, you just tricked them, right? I don't need that. It'll be fine, right?

Cici 16:09
I'm gonna be fine. Don't worry. Like, I don't know how any doctor believes a child that way. Yeah. I

Scott Benner 16:15
mean, okay, yeah, it's a tough call to let a 12 year old make a decision about an epidural right in the height of your needle phobia, like, if I come at you with one, what's your reaction to it?

Cici 16:25
If it's a really big needle, it's bad. The size matters. Yes, okay, so a small, a small needle, like diabetes needle, I don't care. Like an insulin needle is fine, right now, I look at it and I whenever I have to inject myself for whatever reason I do. It's like, I feel like it's a mosquito bite, right? Okay, looking at them and them being big, and especially if they're going into my arm, you know, like a vaccine or something like that, that terrifies me. Okay?

Scott Benner 16:53
But do you run from it? Do you defend yourself?

Cici 16:57
Yes. So five years into my diagnosis, I had been a diabetic for a while, right? And injecting myself for a while, I had to go for the flu vaccine, and I don't know why. Like, that year, I was petrified, and I was with my sister, my mom and my grandmother, and it was almost my turn to get vaccinated. So I was like, Oh, I'm gonna go to the bathroom, right? And I was like, 17 year old. I was old, like I wasn't a kid, right? So I went into the bathroom, and I locked myself in. They had to open the door with a key, and they had to pull me out for my feet to inject me. Okay, so it was ridiculous, but I don't know what happened. Like it came over me. I It came back. Like, right now I'm shaking, like it's just remembering it, yeah, I don't know. I

Scott Benner 17:43
don't I mean, it would be Arden story to tell more completely, but to see her reaction to it is this, it's, it's really, it borderlines on insane, and she knows it as it's happening. Yeah, you know it. She's like, first of all, it hurts. She's not good with the injection part. It hurts, right? But I know this is silly, like, I know, if you like she, she uses the word I'm disappointed in myself for not being able to be okay with this, you know? And I tell her, I'm like, You shouldn't be disappointed in yourself. It's not it's not embarrassing. Some people just have a needle phobia. You You really have one. She said she's had it her whole life, but she didn't really start fighting back about it, until she was at a certain age. And I remember that moment I've said to before, like, if she was Spider Man, she would have crawled right up the wall, like she just backed into a corner and just kept going backwards and somebody came at her. I just thought it was something that kind of appeared out of nowhere, but she remembers it as something she's always dealt with, but just, you know, is old enough now to just, like, voice her opinion about it, act on it. Yeah, she had to get a an injection recently, where my son had to hold her hands so that, like, she wouldn't defend herself against the thing. It's what she asked for. She's like, I need someone to hold my hands so that I don't swat it away. She said, Because that that will work, that worries me too. I'm not going to be able to stop myself, and I don't want to hit the needle, but I want to do the thing so, like, this is all happening, and then, and then she is just like, inconsolable. And then, as it's happening, she goes to, like, she wants to bite down on her own hand, and, okay, bites my son instead. Just tears and fear and everything. And then it's over chaos. He goes, what'd he say? He goes, she bit me. And she's like, through crying laughing now, and she goes, I'm so sorry. It's just the most sincere apology you've ever heard in your life. She's like, I'm so sorry. I didn't mean to I'm sorry. Everybody was okay. And then she starts laughing, but she's laughing through tears, and I'm like, as soon as the anxiety of it was gone, she was just okay. It was really, really something anyway, terrible, you know?

Cici 19:47
Yeah, it beats logic. I don't know. I don't know where it comes from, but it feels like, on the inside, it's oh my god, terrifying.

Scott Benner 19:52
Yeah, no, I imagine okay. So you, you start to manage the way you do. What are your goals as set by doctors and do you. Set your own goals, I

Cici 20:01
don't. So my goal set by doctors were the normal ones, like 180 like 80 to 180 or something like that. But I started with humolog Atlantis. I believe at some point, yeah, and my mom had to give me all the injections. I was incapable, like I couldn't. So she would have to sit me down. I would cry every time. And it was, it was painful, I think for her more than for me. Yeah, right now that I'm an adult, and I know like that must have been terrible for her, I did find a spot in my stomach that made it really easy for me to get injected. Like I didn't feel anything, so I would always inject there until I got a little, like, and plus, and everything. I'm sorry, gross. I know it helped me, like, I could do it there, and I was fine. And I think I did that for like, a year, a year and a half, and I was in a diet, specific diet. It was like an exchange diet, but I wasn't using regular and mph. So I'm not sure why I had an exchange diet. I think it was just like the standard for for care, and people didn't really know why they were using that like it's not logic. Now that I know about mph and regular and whatever, but I did have a limited amount of carbs for a while, and life sucked. I love carbs, right? I didn't have like, goals set out for myself like I was a kid. I felt like a kid more when I got diabetes. I think I didn't feel like empowered. I felt a little bit,

Scott Benner 21:36
I don't know, terrified, yeah, I guess, like, you needed somebody's help, right?

Cici 21:40
And I think my mom and my dad, like my dad, he was devastated. I think, like, I saw, like, something change in our relationship there. And I think it was because he didn't want to see me like that, I think, and my mom, she took, like, everything onto herself, but she also wanted me to take care of it, so I was just like, checking my, my glucose, like every four hours and before meals and whatever. But I didn't really care there. I know you speak about it a lot in the podcast, like,

Scott Benner 22:13
whatever it was, it was, you didn't make adjustments or anything like that. You were just checking, yeah, kind of right. So she wants you to be able to handle yourself and take care of yourself, but at the same time, she wants you to not feel like it's all on you. And then you try to find that balance between like I'll do it and make sure it's okay, versus she'll do it, but know how to do it, but I don't know. I think the secret to a lot of this is that when people are listening, they want somebody to tell them, like, do it like this. This will work, right? And that's just not the case. Like everyone is so individual, and the impacts of how you deal with diabetes and just your health in general, or whether you're focused on something or not, and all the other things that go into it are so person to person, for the person with diabetes, but also for the people around them. Like, right? Like your your dad has one, you know, reaction, your mom has another one. You're having a third. And now, you know, right to come along and say, Oh, tell me the right way to do this. There's, you know, I don't know. It's not clear. It's tough, you know, and it takes a lot of effort and time that you have to put in. Even yesterday, it was not lost on me that in the middle of Arden having this problem yesterday, we were able to manage it and work through it, because I work from home even, like, just such a simple thing, right? Like, because if I'd have gotten up in the morning and that problem existed, and I was like, I'll be home at five. And she would have ignored it all day, you know what I mean, and then I would have gotten home, I'd have been tired and hungry and still had to do a bunch of other things, and it just wouldn't have gone the same way. So it's easy, like, it's easy to say to somebody, you know, like, all the right things, but it's another thing to have the time and the heat and the energy to to put it all into practice, I guess. But right? Well, tell me like, how did you feel when you saw those numbers, when you tested? A little anxious,

Cici 24:07
of course, but I think I was scared of getting low, so I didn't like, we didn't have this idea that when you left the endo you could just adjust your numbers. Well, I didn't get that idea, so I was just injecting my basal, and it was clearly wrong a little bit. I so I did have a few episodes of three or four convulsion episodes at night.

Scott Benner 24:35
You had some C you had some seizures overnight, right? You think it was because you were using too much basal?

Cici 24:40
I do. Okay, I do. So that was sucky for my sister, because she was my roommate, and she didn't love it. And we don't like here in Mexico, that's an important thing. Here in Mexico, we don't have glucagon. Oh, really, still, still, and there's no glucose tabs from the pharmacy. Like, I have to buy them in the US.

How does that work? How do you get glucagon? You don't, you don't have it. And, like, I have, I have it because I go to the US and

pay cash for it. No, I do. Like, I'm really lucky. And my parents, right before I got diabetes, they swapped our insurance, and they got a really bulky plan that actually covers me here and in the US. So here it's called whatever, and in the US, it's Aetna. So I get covered. I'm looking here. I didn't realize that, yeah, there's no book of them. You can get it at the I think it was last week or two weeks ago that my Endo, she's young, and she has Instagram. She put up a story about vaccine. How's it called the one from the No,

Scott Benner 25:49
yeah, yeah, the nasal one, the powder, right, right, right. And she just

Cici 25:53
put up, like, a picture. And she was like, Do you know what this is? And I was like, yeah, that's COVID gone. Where did she get it? Like, is it available in Mexico or what? I'm not sure. I don't know where she got it. I'm gonna see her in a few weeks. I'm gonna check that out. But right now, I have some glucagon for myself, and I got one for my cousins well, because he doesn't have it, and he also lives here in Mexico, and I think it's important,

Scott Benner 26:17
yeah, it's very it's so, I mean, that's crazy. It's just not right. Like, why would it matter of insulin,

Cici 26:24
right? Yeah. Like, there's, there's nothing. Like, my mom would treat me with, uh, jam. I hate jam now. Like, I can't stand it.

Scott Benner 26:33
I think, I think that's everything. Like, everything you can get sick of my my father wouldn't eat chicken, and, like, he asked them why. And his dad had a job where at the end of the week, if the the place he worked did well, this is going to sound very old timey to people, but if the place that he worked at did well, you got sent home with a live chicken. Okay, right? And then it was like a bonus. At the end of the week, he'd come home and toss the chicken over the fence into the yard, and then my grandmother would go outside catch it and, you know, break its neck and pull the feathers off and make it for dinner. My dad did not chicken, yeah, yeah. I see why. You might not like Jim, yeah,

Cici 27:09
but he was a very, very good worker. If he was getting chickens all the time, didn't get a chicken

Scott Benner 27:13
every week, but apparently it ruined my father for chicken eventually. So, right, that's interesting, isn't it? It's

Cici 27:19
counter intuitive, like, I don't, I don't know where it comes from. It's crazy. Just

Scott Benner 27:24
that doesn't feel like a thing that should be difficult to accomplish, right? How many people would type one live in Mexico? Even, you know, we can no

Cici 27:32
but my husband, yeah, I can find out. My husband makes this joke, like, in my town, like, where I'm originally from, I know a lot of diabetes. He's like, What is going on your town? Like, why are there so many diabetics? I'm like, I don't think it's my town. I think it's just because it's small. We all know everyone's live. You're aware of everybody. Yeah, exactly. So I know all the diabetes in my town, but I'm not sure

Scott Benner 27:55
I don't have. This is a two year old article that's type two diabetes. That's not helpful.

Cici 28:00
There's a lot of type two diabetes in Mexico that I can say. Is that

Scott Benner 28:04
food related? Do you think? Yes, yeah. I've interviewed a few people cultural, yeah, yeah, who have the same cultural background. And they'll say, like, just, just what the food is, and it's and every meal and everything. And there's a guy that was on once that talked about it, just so eloquent about it. Almost 90,000 people live with type one diabetes in Mexico, but almost 60,000 additional people would still be

Cici 28:29
Yeah. I mean, maybe it sucks

Scott Benner 28:32
to say, but like, is there not not enough people there for them to sell the thing? But then the other side of it is like, if that's how many people there are. You wouldn't have to really make that much of it to cover everybody. Either, you know, interesting. Yeah, it's weird. I'm sorry. So you are growing up with diabetes through school, into high school, as you go to college, yes, yeah, into college, and mostly between you and your mother. Your dad never got involved, like he

Cici 29:05
would go to the doctor with me. He did try and get me to an a doctor in the US at the beginning, I think, when I was a year into diagnosis, and that's where I got my first glucagon. And I have a really funny glucagon story, because, because we don't know how to use it, we got the big red box right here, original one. And I was having a seizure, and my mom was going crazy, and my dad was next to her, and she was like, please, like, hand me the glucagon. And she just, he just handed it in, and he put it in my leg, and he never mixed it up, a needle, right, right? So I didn't get anything. And we lost the only Bucha one we have. How did

Scott Benner 29:44
you get out of that seizure? Jam with

Cici 29:46
jam? Yeah. So a jam all the time. Yeah. I hate jam.

Scott Benner 29:50
You remember what kind grape strawberry? No.

Cici 29:52
Strawberry. Strawberry. Yeah. Gotcha, yeah.

Scott Benner 29:58
I know. Yeah. I wonder how many other things. Things people are are being put on. Well, yeah, just like, how many kids have grown up saying, like, I don't know, I never want to see another bottle cap in my life. Or, like, you know, like candy that they had one too many times or something. I mean, it makes it makes sense. So you went to all that trouble to get a glucagon. And then when, when push came to shove,

Cici 30:18
we lost it. Yeah? I like, I remembered the story with Arden, when you guys gave her the little jelly thing, right? And you didn't have to use it. So I think it was the same thing, like, but with, damn, right? Oh

Scott Benner 30:29
my god, but, yeah, the glucose gel would come in a tube, like an icing tube. And I have one like that, yeah. And then real one. I opened the cap, but didn't pull off the foil seal, and when I squeezed it over her mouth, somehow the foil seal was stronger than the back corner of the tube. So this pin hole pops in the back corner of the tube, and I'm basically like, I mean, just decorating the ceiling of this hotel with this just laser beam of glucose gel. And as it was ridiculous. So then I looked at it and I saw, like, I didn't pull the thing off, and then instead of pulling it off, I just turned the I just turned the tube 90 degrees.

Cici 31:10
God, yeah, good problem solving.

Scott Benner 31:12
Well, how do you manage today? You have goals and outcomes now. So where did you come up with goals and outcomes for and how did you how did you figure out how to do it.

Cici 31:20
Okay? So about, I think it was like a year ago, well, I got married, like three years ago, I started thinking about kids at some point, right? And I was like, I don't want to be in the situation where I want to have kids, but I have to do all this work beforehand. Like, have to wait. So I said, I thought, I better start doing the work now, right? I wasn't really bad. I had a Stephanie 1c so it was not bad, but it was not good. And I started looking on the internet for options, and I saw things like a pancreas, something about ginger, Viera, and I saw your podcast, it was listed, and I was like, I don't want to listen to a podcast like, from the father of someone with diabetes. Like, that's not for me, because I have this idea of my mom, like my mom, whenever she would tell me something, like, no, should be a better manager. You should do this or that. I feel like I'm a lot like Arden. In that sense, I heard an episode from her, I think, yesterday, that she hates being told what to do, so I do too. Whenever she would tell me something I would do, like the opposite, or wait and do it myself later. So when I saw it was like from the father of someone with diabetes, like, No,

Scott Benner 32:34
I don't need I don't like that, by the way, she told me the other day. I said, Are you taking your vitamins? She goes, No. And I said, why not? She goes because you told me to

Cici 32:42
right? That's like, okay, yeah, that's me. That's me. I don't know why, but it's just big headedness. I guess you intersect

Scott Benner 32:49
the podcast, but the setup seems wrong. Like, did you then think, well, I'll go find a podcast from a person that has type one. Instead,

Cici 32:56
I started reading things like, pancreas, okay, one of the things it said was that one of the elements for better control was attitude, right? And I thought, right, like that. It's seems terrible. I felt like really bad about that, because it really was my fault, like my attitude. It's all wrong. I was a kid, well, a teenager, when I got it, and I was really take headed like that. So I didn't want to, like, investigate or research or read or anything. But right now, I'm a completely different person, but I still had that attitude kind of, of course, diabetes, I just like, flipped a switch and said, so the thing you have to change is your attitude, right? Like, I had a pump, I had a sensor, but it was a libre, the first one here in Mexico, we only have first one. So I had the tools. I just had to change something. And turns out it was my attitude. So with that attitude change, I was like, Maybe I should listen to the podcast. I'm like, not care if it's the father of someone with diabetes instead of someone with diabetes. Right? Interesting

Scott Benner 34:00
route to make that decision that is really interesting. Yeah, yeah. And why can't they send you the libre three? What the heck it's like plastic in a wire, right? Just do it, right? I don't understand. Okay, so, so you find it, go, nah, that's not for me. Then you read a book, and the book says, Hey, maybe you know you should just have a better attitude about a loss. You're like, you're right. And then you actually had a moment where you were sitting in your home and you thought, I didn't give that guy with the podcast enough of a chance. That's where you switch. Let's

Cici 34:27
give him a chance. Yeah, exactly. It was just like that. So I looked and I was overwhelmed with all the episodes that were available. I think it was October of last year, so, okay, about a year ago, but I saw that you had the pro tips. So I was like, I'm going to start with the pro tips. Makes sense, right? And I really loved, like, your your whole thing with Jenny, she seems really nice. And I listened to them all, I think, in a week, and I would tell my husband, like, you have to listen to them, because by that point, he wasn't very involved. Mm hmm. My my care because of the same thing, like my attitude. I didn't want anyone like hustling me and like bothering me with it. But I did switch my attitude towards that as well. So I told him, like, you should listen to it. It's really good. You're always asking if someone doesn't like you, my husband, he doesn't like me. He doesn't like you that much. He likes your episodes, but he doesn't like it. That's fine,

Scott Benner 35:25
as long as he listens. I don't really care, right, right?

Cici 35:29
I think it's because, am I not manly enough for him? No, I think you remind him of himself. Oh, really interesting. So there's, there's a saying in Mexico that says, look at the Chica. So what you hate, like, is what you have, what you hate in someone you have, so

Scott Benner 35:45
your husband's awesome, right? Yeah, that's great. And it's a shame you can't get over that, right? Isn't it funny? Like the idea of I mean, honestly, the I've gotten a ton of different reviews over my time. There's one right now, this person definitely hates my guts, but the one that sticks with me is being both amusing and really, like, I love it. Is that one, like, I don't like that guy, but I do like this podcast, yeah, right. Like, I like what it says, but I don't like, Oh, awesome. That's great. Because I feel like, you know, it's almost like, it's like, that picture I had of you going, Oh, do I have to go, like, give a guy that made a podcast a second chance like, I love picturing in my head someone picking up their phone every day and going, Oh, this looks really interesting, just

Cici 36:29
I have to listen. Oh, my God, hey, wasn't it my husband? Maybe,

Scott Benner 36:36
trust me, it's not the only one. The truth is, is that I can just be me, right, like and do this thing the way it occurs to me, and some people are gonna like and some people aren't. And I can't go bending to everybody's will or, um, then it's milk toast and it's then nobody will like it, and, and I'm not gonna do the big like, empty headed, say the stuff that everybody else says. So it doesn't offend anybody. Thing like that doesn't make any sense to me either, so it's impossible. Yeah, what am I gonna do? But nevertheless, tell your husband. I said hello, and probably okay, so you listen to the Pro Tip series. Is it like a, like a light over your head moment, or does it come slowly to you?

Cici 37:19
No, it is. So I started listening in October, and by December, so it was mid October, and I had an A 1c of 771, and by December, after I listened to all pro tips and a lot of episodes, my my a 1c was 6.40 wow. So I hadn't even gotten the three months, you know. So the only the switch from that month and a half, it made my a 1c drop, almost point. Wow, good for you. And that

Scott Benner 37:49
was Bolus thing, counting your carbs better, got your settings right. That's pretty much it, right,

Cici 37:54
right? I had this thing, like, because of my attitude, I tell you, I would go to the end though, and they would tell me, like, you're killing yourself, you know, typical gear tactics, and they would switch my basal. But I knew the problem was my Bolus, right? So I would, I would keep my basal like they told me, like the switch and whatever. But I knew I had a bigger basal than I needed. So whenever I would put on my carbs, they would tell me to put, I don't know, a ball Bolus of five units. And I was like, no, no, let's do one, because I knew I had a lot of basal behind that, right? Yeah. So I never knew my real car, I didn't have them, right? Yeah.

Scott Benner 38:35
It's incredibly common for years, years, incredibly, incredibly common to be over basal and then under, you know, under performing with the rest of it. May I read you this one that I got recently that I really I loved. I would make this into a t shirt and wear it. Please refrain from senseless drivel When dispensing medical info, this audio could have been narrowed down to less than five minutes. I hear you, Thomas. I just talk and talk and talk. Sorry Tom. Happens what I would say to talk if he was here, and if that is really his name, I'd say, Look, you know, the reason people listen is because it's not just cookie cutter, like cold. This is what to do. Like, if you made a podcast like that, maybe someone like him would listen, but most people would not want to give the time to they'd be like, This is freaking boring. Like, look at what you said. Like you talked about, you know, I wasn't even a full like, you know, cycle into the Pro Tip series. My a once he comes down a point. Like, I make all these, like, revelations about my settings and all this stuff and everything. But when you first started saying it. You said, I really like the way you and Jenny are together. Jenny seems nice, like you said personal things. You didn't say, hey, the information was really great. Yeah. Why you said, yeah, it was how you said it. Yeah, exactly. So anyway, Thomas, I'm trying buddy, but this is how I talk. And I don't know another thing, yeah, I just not. There's not much more I could do. Also, I hope. That crazy people now don't think not the Thomas is, by the way, I thought that was a fairly reasonable statement, of course, of course, he has a point. But I don't want actual crazy people to think that the way to get on the podcast is to leave a crazy review, because I won't be doing this again, just so you know. Okay, yeah, so tell the voices in your head to stop, because it's not gonna happen. All right, what about this? Did you have a eating disorder? Do you have an eating disorder?

Cici 40:28
I don't anymore. I didn't know I had it until I heard the podcast and I saw like, I heard the name of it really. So I went to Canada for a year to study, and I my a, 1c, there was like 13. So it was terrible, because, you know, we would go to sugar shacks and things like that, where you just eat maple syrup out of the tree. I was

Scott Benner 40:52
good when you said that I was gonna go Stacy, but I don't want you to feel like you're being parented by me. So I stopped. I love that. You said Sugar Shack. Is Sugar Shack a real thing, or is that a made up thing that sounds Canadian. No,

Cici 41:02
I think so. I think it's called like that. That's the name. You can check it out. I will. So I had a really bad a 1c and for the first time since I got a diabetes. Oh, so I didn't, I never said like when, when I got diabetes and I lost all the weight, I finally felt, you know, like thin and beautiful and whatever, which I hadn't before. My sisters were always like this thin, beautiful girls, and I felt like the chubby, ugly one, right, like the ugly duckling. Sorry,

Scott Benner 41:31
I know, I know you understand. I mean, I understand personally, and I have a daughter and so, but yeah, I It's so strange to hear, Well, it's nice to hear someone just say it out loud that, you know, because we can, like, I think, in America, we can try so hard to cover other people's feelings that nobody, sometimes people don't say what they think out loud, but okay, you felt ugly and like compared to your sisters.

Cici 41:55
Yes, I did sorry and like I heard. I did hear it sometimes, like I was the, you know, like the odd girl out a little bit, really. So somebody would say it out loud, no, like, not to me, but I did get

Scott Benner 42:08
a curate, something like the ancestors thing, I think,

Cici 42:10
my, yeah, like my uncle or something. So, yeah, I did have this, wait a minute, this concept, give

Scott Benner 42:18
me a second here, like, oh, look the girls. They're so beautiful. And Stacy's here, like that, yeah, like that, like that. Look who else dumpies Here. Okay, all right. Oh, it's terrible. I'm looking at you now. You're beautiful. Also, I'm looking at what a sugar shack is. And are you telling me that they go out in the snow and pour liquid sugar across the snow, and then it hardens, and you eat it.

Cici 42:42
You take it like a lollipop. Yeah, I'm on Canada.

Scott Benner 42:46
I know Canada. Come on, that's somehow awesome and terrible at the same time, right?

Cici 42:51
It was delicious, like I loved it, and I did have a lot of fun, but I also felt shitty all the time. No kidding, you can imagine that, right? So I did. I did have an agency of 1313. Yeah,

Scott Benner 43:02
okay, I'm so sorry. So you're hearing from family and other places that you're not the right person. You've, you've, you've lost weight, you feel better. Please keep going. I'm sorry. Yes,

Cici 43:11
and people start like, looking at me differently, so I'm pretty now and I'm thin, and they tell me, like, you look amazing, and they are not like they don't know what happened to me, or they do, but they don't understand that it's not healthy, like the way I'm looking right now, it's not my healthy weight, right? I think that was all unconscious on my head, like I just found it out now, yeah, like a year ago, right? But when I go to Canada, I do gain weight for the first time ever after my diagnosis, because I even if my a 1c was 13, it couldn't keep up with like, the way I was eating and not exercising and not taking care of myself, whatever. So I did gain like 10 kilograms, so like 20 something pounds, I guess, and I felt terrible like I didn't like the way I looked. So when I came back, instead of, like, getting my together, starting to get better control of my glucose, I just kept going like that. Like, I did a lot of exercise, and I just ate uncovered carves, and I would be high all the time, like, I would still have an A 1c of, I don't know, maybe not 13, but maybe 12 or

Scott Benner 44:23
11. No point did you know that I'm keeping my a 1c high, and that's keeping my weight down, but I'm probably on the verge of being in DK most of the time. Like, you didn't consciously understand that was happening, okay?

Cici 44:36
And but I it just worked,

Scott Benner 44:40
yeah? Like, Oh, I see. So you just like, well, whatever I'm doing must be okay, because I'm thin and people I'm pretty, right? Okay, right. But you didn't have, like, further thoughts about it, like, I'm but I'm doing something that's unsafe for me. I'm doing other damage to my body. I shouldn't you didn't have any of those. Like, did you know one? Subconsciously, when you look back,

Cici 44:58
yes, I think so. Like. I knew I shouldn't be 300 all the time, right? Did you

Scott Benner 45:03
know The direct line between that and the weight?

Cici 45:06
No, but I did. I do remember now that at some point when I was like 15 in in a TV show, like America's Next Top Model, there's Mexico's Next Top Model, and there was this girl who said, like, whenever I gain weight because I'm a diabetic, I just don't get my insulin that day, and I'm going to be fine next the next day, like, I'm going to lose a pound or whatever.

Scott Benner 45:28
I just put that out on television,

Cici 45:30
right? Yeah, it's crazy. Like, I I remember that now, but I didn't at that point. I don't think so.

Scott Benner 45:37
Is that show as crazy in Mexico as it is in America? It is, yeah. Arden made me watch it once. I didn't make it through a bunch of episodes, but it made my head hurt, right? Yeah? I mean, like, Yeah, it's crazy. Because if the model would have said, you know, if my weight goes up, I just do coke for a few days, like, they would have been like, No, you can't say that on TV, right? But this, okay, interesting, you know, it probably goes to show that nobody understood what she was saying, even, right, you know, yeah, that's something. It's also how most people tell me that they learn to manipulate it. They'll always say, like, oh, I learned a diabetes camp, like, I met some they don't mean diabetes camp. They mean I met other people. And I met a big enough group of people with diabetes, that someone had that, that method information, they shared it with me, and I was like, Oh, I didn't know that. And, you

Cici 46:26
know, I went to diabetes camp and I didn't learn I did

Scott Benner 46:30
no, no. So you do this for a while, then eventually you're saying the Canadian food put you're saying the Canadian food was harder than the Mexican food, yes, because it's sweeter. Now you're winning something. This is more simple sugars,

Cici 46:43
right? And because in my house, like my parents would, would be trying to give us, like, healthy food, right? Okay, yeah, your parents, I went, right? I went into a family in Canada, and they had, I don't know they had Nutella. I'd never tried Nutella. And I would do, like, spoonfuls from Nutella,

Scott Benner 46:59
yeah. Like, did you ever have a maple Long John while you were there?

Cici 47:03
I did, and I had a beaver tails. They were amazing, okay, like, things like that.

Scott Benner 47:08
Why do I know maple Long John? Hold on. Oh, it's actually the name of an episode. I didn't know why I knew it, but now I understand. So, okay, so you go from your parents trying to be like, please eat better to you know, hey, Stacy's here. She's a guest. Have fun. Enjoy maple syrup frozen in the snow, like that kind of stuff. Yeah, you finally it catches up with you. You put on weight, but your blood sugars are still high,

Cici 47:35
yes, so I don't know how I managed that. I mean, it sounds like you didn't. I was kind of scared, like, so whenever I got really high, like, 500 and things like that, I would give myself insulin. So I was more on a roller coaster. So I think maybe that's why I didn't lose weight. It wasn't consistent, like, consistent 300 Okay, yeah, so maybe that's why I did anyways, I don't know. I think

Scott Benner 47:58
this is probably a good place to say that diabetes really dangerous and you shouldn't be doing any of this stuff, but I do appreciate you, yeah, saying zero out of 10 don't

Cici 48:07
recommend. I'll

Scott Benner 48:08
tell you, right? Yeah, and I'll tell you right. Now, interesting thing is, how many people do you think just heard you say that, and they went, Oh, wait a minute, I don't eat very well. My blood sugar is high all the time. I'm thin. I correlate that with health Am I doing something wrong here? Like, I don't know either. Because if you didn't know, there's other people who don't know as well. But it doesn't stop it from being the health concern that it is. And do you see it as a like a psychological or a mental health issue as well? In retrospect, yes, I think so. Okay, you know, how, like, can you put words to how it happens? Or,

Cici 48:47
I think I've always been really anxious, and, you know, like, I have a lot of anxiety now, I see it I didn't before, and like this, need to fit in so I don't share like, I didn't share my feelings. I wouldn't talk to people. I wouldn't I don't know I was very introspective, and maybe that like, if I had, at some point voiced it like to someone, maybe they would have helped me get that like, see it from another perspective. Sometimes you're like, so closed off with your idea, when you don't see like,

Scott Benner 49:21
it's happening, right, right? The hardest part to it, when you're trying to help another person, yeah, is that they have their own thoughts, too. You can't just make somebody like, even if your mom saw it, she couldn't just force you to do the thing, you know, right?

Cici 49:35
And I don't think she saw like, I'm not sure if she saw it, because it wasn't that long, like, it was like, a year, or a little bit less than a year, and we're gone anyway. Yeah, yeah, I see

Scott Benner 49:47
So at what point do you like when you say you found the podcast and you brought this down? How long ago was that? A

Cici 49:53
year ago, just so I was, I was unmanaged, like, kind of for 16 years. I. Wow, a long time you feel better. Now, a little more tired. I can say that, like, tired, like it does take a lot of me because I had to, like, implement things I never did before, so, but I'm getting used to it. Um, it did. It was hard on my my feelings, like, how I felt when I was, like, 110, I felt like I was 50. You kind of manage

Scott Benner 50:22
it. How long did that last, by the way, until your body figured that out, like three weeks or something like that. Because it's real, like you, just because you're not technically low doesn't mean you don't feel all the feelings that come with a low blood sugar.

Cici 50:36
Right? Your body gets used to it. Yeah, gosh, oh, wow.

Scott Benner 50:41
Are you here to say I saved you? Am I getting a Mexican baby named after me? Let's go. What's happening? I'm

Cici 50:45
not sure. It's got, like, it doesn't sound nice in Spanish. What

Scott Benner 50:49
is it? Wait, what is it in Spanish, the same? Scott? No,

Cici 50:53
yeah, it's like Scott and like Scott and like scotch tape or something like that.

Scott Benner 50:56
Is there not like, an equivalent like that? You could pretend it's Scott, or we could, we could do something with S. Maybe I just love the idea of your husband having to call his son for

Cici 51:08
yeah in your honor, and hating you. Yeah. I don't care.

Scott Benner 51:11
Otherwise. I just love him looking down and going, I can't believe she made me name this kid after that podcast guy I don't like, right? But so are you really thinking about having a baby now?

Cici 51:21
So yes, but like, also, I've heard a lot of your episodes, and you're like, always, like, don't rush into it, because that's right. Like, we, we're not in the best spot, I think, yeah, economically. Like, it's expensive, yeah, yeah, yeah, it's expensive. And, like, I have to go to the US, like, to get my stuff. I can't get my omnipot or my Dexcom or anything here.

Scott Benner 51:42
Yeah, talk about that. So you're using Omnipod five, but that's not available in Mexico,

Cici 51:47
no. So I started listening to the podcast, and I I saw how, how my a, 1c, changed, just by attitude, you know, but you would push omnipot onto me, right? I was not put I

Scott Benner 52:00
just want to say I wasn't pushing it. I know they buy ads and I say the thing they asked me to say, and my daughter does use it, but that's it. Am I gonna use whatever you want? Sorry, no, no, you should. That word was so aggressive. You should use whatever you want. Like, seriously, go, go get a tandem. It's fine with me.

Cici 52:17
I'm sorry. I'm just bullying you. So, like I had already been on a tube pump so long. And I actually have funny stories about that. I've been on six pumps before omnipot Because I'm really clumsy and I dropped them electronic animus, like animus, Medtronic, Medtronic, Medtronic, electronic Medtronic, oh, oh, usually

Scott Benner 52:38
you just break your pumps. A lot. I would break

Cici 52:40
my pumps, yeah, okay, and they fell in the toilet. And

Scott Benner 52:44
do you think you had less respect for them back then than you do now? Yes,

Cici 52:48
yes, totally, like My poor mom. She had to fight with the insurance company all the time to get them covered, because they don't cover them, right? But she would fight them, and we did get them all covered. So, right? She deserves, like, a national holiday or something, absolutely, because she did get them all reimbursed. So, yeah,

Scott Benner 53:07
great. Well, I think your conversation really is highlighting for me the things that you think your life is about, day to day. Like, when you look back like this, like this is great like, because you retrospectively, get to look back over what happened to you, and you get to say, hey, look, I think this is what it looked like, but here's what was actually happening in so many different ways. I would hope that the people who are listening now, who are in real time going through these things, would think, well, this is what I think is going on, but I wonder what's actually, actually, yeah, you know, like, what's really going on in everybody's minds? It's making this whole thing turn like this. I think those are interesting things to consider. But okay, so you're throwing your medtronics into the toilet, right? Twice? Did you really do it twice? Yeah, but it was, what happens you pull your pants down. It's stuck on something. It yanks up and and stuff like

Cici 53:54
I had, I always had them on my pants and with a little clip. But whenever, like, like, literally, it was going to the bathroom, and the clip, like, fell. So it fell in toilet. Yeah, I was in, like, at work, and it was really embarrassing. And the second time was actually after I listened to the podcast, and I decided I wanted to try omnipot, which I had already seen. There are two people in my town in Mexico that use omnipot, okay, so they go to the US. We're in the, like, in the border, like, five hours to Texas.

Scott Benner 54:26
Yeah, five hours. This a fair, fair ride. It's, I know,

Cici 54:29
but I don't know. Like, people in the north part of Mexico are used to crossing for shopping, okay, how often do you do it? I used to do it, like, for shopping, before I got diabetes, every six months or eight months. Yeah, you go more frequently now that you have diabetes. I go every six months now, every six months now, I'm sorry, yeah, okay, but I live like in the south, south Mexico, like near Cancun, yes. So that's why I'm like, it's expensive, because I have to fly, oh, so you fly in to do it. Yeah? Yes, or I go to my town, and then I take a car and I cross,

Scott Benner 55:03
I got you Okay, right? And then it's the insurance that your father set up for you that's still going, yes, yes. Do you pay for it now? No, like they, they're helping us out right now. Do you know how much it is?

Cici 55:17
No, I but I can't check it out. I know it's, it's significant. So that's

Scott Benner 55:24
wondering, like, if, for other people listening, if you know, like, how they could do that. I also want to point out the Omnipod that, you know, you bought an ad for me to sell something in America, and I was still able to sell in some public Mexico. Yeah, right, yeah, yeah, yeah, great, yeah. I'm just wondering how much it costs, because, I mean, is it a thing that's something ever do you think your are your parents? How do I Are your parents? Well off they

Cici 55:47
are now. I think back then, they were having a hard time, and that's why they're helping me now, like they're they were able to afford it when I was 12. So they they'd been married for like, 15 years, and they were like, they had started a business. It was going great, and they had a hard time paying it. But after I got diabetes, they were like this indispensable now for me and for my sisters, just in case, yeah, they just kept on paying it. I think it happened because one of my mother's friend's sons got cancer, right when he was scared. Your parents really young, yeah? And he it was really, really hard on them, and so they, they got that insurance because

Scott Benner 56:25
your parents have been married over 30 years now. Yeah, 35 Wow. It's awesome. Yeah, very cool.

Cici 56:31
Good for them. Yeah,

Scott Benner 56:33
I've been married 29 years. And I was like, I don't actually meet a lot of people who've been married longer than me unless their hair is

Cici 56:38
gray. So my father and mother in law, they're, they've been married almost 50 years. Wow. How old are they? They got married at 20, and they are right now. They're 70.

Scott Benner 56:50
Wow, that's crazy. Yeah, that's really nice. Yeah, I just I'm as long as my hair stays dark, I think I'm okay, but you're fine. Yeah, as soon as it pivots like I'm in a significant what made you reach out and want to be on the podcast. I think that,

Cici 57:06
like the idea that attitude is everything, and then you're never too late change your attitude. I was 16 years into diabetes, right? I thank God never had any. Well, I don't have any, okay, so I have no, I don't have any effects from my diabetes yet, but I was, I was really out of control for a lot, a long time. And I think I don't know the diabetes gods that I don't have anything, right? I did take action at some point, even if it was maybe late in someone's eyes. And I think anyone can change their perspective, like that.

Scott Benner 57:44
Great. You don't have like, like, an anger that you didn't figure it out sooner.

Cici 57:47
Yes, oh, you do have that I was out of control for 16 years, and you can still switch, like, with the switch. Yeah, it's never

Scott Benner 57:55
too late, right? Well, I mean, it could be too late, but you got him, I know, but I got lucky. Yeah. Do you feel like that? Do you think like, wow, I just gets random. Like, the Genesis is, I maybe want to have a baby one day, but when I'm ready to get pregnant, I don't want to have to stop and think about my diabetes. So let me put that in order first. Oh, here's a podcast and a book. I'll read the book, but I'm not going to listen to the podcast because the guy podcast because the guy's a dad. Gary says, you know, have a better attitude. The way I say it, by the way, is I always say, like, there's no room for drama in diabetes, right? You need to take care of yourself. We don't have time for all the like, what was me and the sucks and everything like, do that later, right? And then you go back, listen the podcast, do the Pro Tip series. Your Stuff comes down, and then it occurs to you, I should share with those people that are listening that, look, I did it. I got out of this,

Cici 58:51
right? Yeah, yeah, okay, that like to hear from someone that so long was like I had that woe is me like mentality. I just, I felt all the time like I was just angry life and diabetes and whatever. So like even the most pig headed person can change their mind, right? You

Scott Benner 59:13
don't want your episode to be called formerly pig headed, do you? Because I would do that too. You could whatever you like, or whatever I like. Don't put it on me. It's gonna end up being something stupid. I can tell you that for sure. I like that. I love finding out the why, the names of the episodes. Oh, do you okay? Yeah, I love it. We'll call it formally pig headed. Then, okay, great.

Cici 59:35
What would that be in Spanish? So pig headed would be terca, like, T, E, R, C, A or T, E, I

Scott Benner 59:44
love your language. You don't even know for sure.

Cici 59:47
I'm like, no, because I have to, like, translate the letters in my mind, okay,

Scott Benner 59:51
maybe I'll do it like that. Like, maybe I'll do it in English and then spam. Maybe I'll do formally tereka.

Cici 59:59
Okay, I like it for. Money that guys, it's nice. So yeah. So after I started listening to you, I decided I wanted to try the Omnipod, because I dropped all my electronic pumps, and they were, like, messing with my life. I talked to my husband, and he said it was a good idea, and we had to, like, take advantage of the of the insurance that I had, right, that I was lucky to have. So we figured out who we wanted to see. I talked to the guys. I told you that use omnipot in my town, yeah, to see where they went, to get them, I ended up going to a different doctor, one that my girl in my town told me about, that she's using the Medtronic 770-747-8780, yeah, I think, I think 740 in Mexico, but she went there to get to 780 Okay, so I went there and I talked to him, and I told him I wanted to switch to omnipotent. He said for him, we took advantage of the four days we had there, and we went to the pharmacy, and I got six months of supplies like front right with my credit card. They were like, they they didn't understand, like, how I'm going to charge you in your cart. I'm like, yes, so my insurance, not like, the ones you know, I needed to charge everything in my cart. And they were like, it's really expensive. I'm like, I don't care. Like, just do it. Yeah, right. I was messing up with their logistics or something. And we got everything for six months. Came back, started using it. Didn't like the automated mode. It was a little bit too conservative for my new mentality, right? So I started using it in manual, and right now, my a, 1c, is five, two.

Scott Benner 1:01:30
Wow. Look at you. Do you ever think about turning it on for overnight? I do,

Cici 1:01:33
but I don't know why. It always wants to keep me at 130 and I wake up tired whenever it does. That is

Scott Benner 1:01:39
the target set at 130 right now? No, it's 110

Cici 1:01:43
it's 110 Yeah, okay, I don't know either. Yeah, I don't interesting. Did

Scott Benner 1:01:49
you think? No good. Sorry, no, go ahead. Go ahead. I was gonna say. Did you think about getting dash pods and using, like, that's it loop or something?

Cici 1:01:56
So we're gonna, because I heard it in the podcast, and I heard that you guys switch to Iaps. We're gonna try that. Yeah, Arden's using trio at the moment. Oh, okay, I didn't know that. Yeah, I'm gonna look into that.

Scott Benner 1:02:07
It's Iaps on another branch, so okay, but that's what she's using right now, and it's working great. Oh, it's nice. Yeah, I don't think you could, probably couldn't go wrong with, like, loop, with auto Bolus, Iaps trio, like those, in my opinion, yeah, would work. Well,

Cici 1:02:24
we built, well, my husband, he's really tech savvy and not that much. He built the pump, and he we're using it like a trial pump, like to see what decisions takes and things like that. But it's not linked to any pod. So when we go in December to get my new supply, I'm going to ask for Dash,

Scott Benner 1:02:42
oh, oh, wow, look at you. I was ahead but behind when I said that. Yeah, you're you're like, Oh, I'm already taking care of it, right? I am. Do you enjoy listening to people's stories on the podcast, or are you more interested in like,

Cici 1:02:57
like, management stuff? No, I do enjoy the stories like I started with the management, because that's what I thought was logic. But then I started listening to everything, and I think I've listened to almost everything.

Scott Benner 1:03:10
Thank you. I appreciate it very much. I'm good. Do you have anything else? Did I forget to ask you anything? No, I don't think so. All right, then we have to go back to this for a second. So it's T, E R, C, O, this is chat, G, P, T, by the way, explaining Spanish to me. Okay, T, E R, CO or cabenzon, C, A, son, they say it again, cave. Son, yeah, I wasn't gonna get that right. It means head. Like, like, you have a big head,

Cici 1:03:37
okay, but you don't have a big head. You're not big headed. Like, literally, I am. I do have a big head. Do you really have a big head? I do. Like, I had the biggest graduation had in the whole generation, like, including men. So I do have

Scott Benner 1:03:50
a big head. Do you know now that I've lost weight, none of my baseball hats fit? Really, I didn't think my head stays the same all the time. No, my head lost weight. Nice, it's ridiculous. No, mine didn't. No, seriously, like, I wish I had, I wish I had one in here to show you, like they just kind of fall so stupid. They just kind of fall down, right? And it's silly, but, but anyway, all right, so I so I want to go with ter CEO, is that right?

Cici 1:04:16
Right? But it would be tr ca, because some gar a girl,

Scott Benner 1:04:20
is your girl? Right? All right, I got it. I'm good. Okay, excellent, great. I appreciate you doing this very much. I appreciate also people don't know if, but you let me push the time back today, which was great, because Arden was leaving, uh, after her fall break for school, and you allowed me to spend some more time with her, so I appreciate that too. Borus, yeah, I didn't know she was going to be here on this day when I set this up. Yeah, me neither. But honestly, to say that if I would have known, I could have done something differently, is also giving me way too much credit for being focused on top of things. I really means a lot to me that you found the podcast and. And helped yourself so much with it. It really does. Yeah,

Cici 1:05:04
thank you for what you do. I think it's really, really important. Thank

Scott Benner 1:05:07
you. No, that's lovely. I don't get enough of this. Like, my days can get long with, like, the back room stuff of making the podcast and, like, you know, sometimes you just the way I keep myself grounded, keep myself aware of what it's you know, what the end result of what's happening is, is usually just like through social media, where people will come and say, Oh, this really helped me, or something like that. But then if a week or two goes by and I don't look at that stuff, then I end up feeling badly, because then people reached out and I didn't see it, which makes me feel bad, right? And then I'm like, oh, I should have read this last week, when I was having a bad week, you know, because it really would have helped. Or this morning, by the way, when somebody I do business with was just like, there's such a pain in the ass. Like, they, they email, like, children, do you know what I mean by that? Like, yeah, I do. Like, here's a thought, and then you answer it, they go, Oh, and here's another thought. I'm like, oh, what? Or what are we doing? Like, can you just put this into one email please? And they're lovely people, and there's nothing wrong with them. They're what they're representing or anything. They just, I just hate the way I'm gonna keep saying that email. I because I don't want to say he or she. I just hate the way they email. And right when it happens, I just go, I'm like, Oh, is this what my day is going to be, Hey, before I let you go, the artwork behind you? Is

Cici 1:06:25
it yours? Yes, yeah. Not that one. No, this, like this little ones and the big ones, there. Are

Scott Benner 1:06:33
they painting? Are they watercolor? Are they marker? These are paintings.

Cici 1:06:36
They're acrylic. And then this ones are screen printed. I do screen printing. Is

Scott Benner 1:06:41
that what you do for a living, or you just for fun? I'm trying to switch it

Cici 1:06:46
for a living, like I do wedding invitations and graphic design. Oh, that's beautiful. And then what I try to do is integrate painting in the back of a wedding invitation so that people don't throw it away.

Scott Benner 1:06:57
Oh, okay, so it seems like art. They'll hang it up and hold on to it, and even keep it after the after the date.

Cici 1:07:03
Yeah, I put a little note on it saying, like, don't throw this away. It's a gift from the like, from the couple to you and, right. Oh, it's lovely frame it.

Scott Benner 1:07:11
I have to tell you, it's not an easy thing to do. Like, I don't even like my logo. Is I don't even like my logo. I just can't like it's so difficult to get something else, you know, like, I'm not artistic. I'm like, I'm not going to be the one to do it. And when you reach out to get somebody else to do it, it's their esthetic. Like you're, you're buying their esthetic, right? And then if you don't like it, what do you do? And it's, I don't have endless money to be like asking people to change it, but I,

Cici 1:07:38
I guess it probably help you. Everyone No, I'm not. I do logos as well.

Scott Benner 1:07:42
Yeah, but I'm not. I'm not, I'm not haranguing you. I don't know if you know that word or not, but I do. I didn't know it. It just feels like it's like one of those things, like I would change that if I just, if somebody would just do it and then present me with something that I went that's perfect. Thank you. Thank you. I'll just put it up, but I don't want to be involved in the process whatsoever. And if I don't like it, I want to be free to say I don't like it. But having said that, I don't know what I would want to begin with. I don't like it to be ham fisted, like, I wouldn't want needles running through it, and, like all that, I hate when they have needles, because I mentioned that it doesn't need to be and I don't need a juice box to be involved. Like, you know what I mean? And then I just yeah, anyway. And anytime I've ever reached out to anybody, they're like, well, we could put it on a juice box. On a juice box. And I'm like, Yeah, because that seems obvious, and I don't want it to be that obvious. Then I get bitchy about it, and then I just give up. So right, you were really lovely. I appreciate this. Are you in the private group I am, but I never speak you, never. You've never, like, ever,

Cici 1:08:38
never. It's interesting. No, I'm one of those people that lurks that you've mentioned sometimes. Yeah, awesome.

Scott Benner 1:08:43
There's way more lurkers than speakers, that's for sure, I know, but I was just wondering, because I hadn't seen your name there. So I was like, Maybe

Cici 1:08:52
I think you should find me there if you look for me. Okay,

Scott Benner 1:08:55
well, I'm not gonna, I'm not gonna have to be creepy. I'm not gonna do that, but that's fine anyway. I really, I really appreciate this. Hold on one second for me. Yes.

Us, med sponsored this episode of the juice box podcast. Check them out at us med.com/juice, box, or by calling 888-721-1514, get your free benefits check and get started today with us. Mid I'd like to thank the ever since 365 for sponsoring this episode of The Juicebox Podcast, and remind you that if you want the only sensor that gets inserted once a year and not every 14 days you want the ever since CGM, ever since cgm.com/juice, box. One year, one CGM. Are you starting to see patterns, but you can't quite make sense of them. You're like, Oh, if I Bolus. Here, this happens, but I don't know what to do. Should I put in a little less, a little more? If you're starting to have those thoughts, you're starting to think this isn't going the way the doctor said it would. I think I see something here, but I can't be sure. Once you're having those thoughts, you're ready for the diabetes Pro Tip series from the Juicebox Podcast. It begins at Episode 1000 you can also find it at Juicebox podcast.com up in the menu, and you can find a list in the private Facebook group. Just check right under the featured tab at the top, it'll show you lists of a ton of stuff, including the Pro Tip series, which runs from episode 1000 to 1025 okay, well, here we are at the end of the episode. You're still with me. Thank you. I really do appreciate that. What else could you do for me? Uh, why don't you tell a friend about the show or leave a five star review? Maybe you could make sure you're following or subscribed in your podcast app, go to YouTube and follow me, or Instagram, tick tock. Oh gosh, here's one. Make sure you're following the podcast in the private Facebook group as well as the public Facebook page you don't want to miss. Please do not know about the private group. You have to join the private group as of this recording, it has 51,000 members in it. They're active, talking about diabetes, whatever you need to know. There's a conversation happening in there right now, and I'm there all the time. Tag me. I'll say hi. The episode you just heard was professionally edited by wrong way, recording, wrong way, recording.com, you.

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Scott Benner 3/6/25 Scott Benner 3/6/25

#1453 Big Baby on Board

Stephanie, 37, diagnosed with T1D at age 7, is 28 weeks pregnant via IVF with wife and their 11-year-old son.

+ Click for EPISODE TRANSCRIPT

Scott Benner 0:00
Welcome back, friends. You are listening to the Juicebox Podcast.

Steph 0:15
Hello, I'm Steph. I'm 37 I live in the UK. I've had part one diabetes for 30 years. I'm currently 28 weeks pregnant with our second son.

Scott Benner 0:27
Nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan. I know this is going to sound crazy, but blue circle health is a non profit that's offering a totally free virtual type one diabetes clinical care, education and support program for adults 18 and up. You heard me right, free. No strings attached, just free. Currently, if you live in Florida, Maine, Vermont, Ohio, Delaware, Alabama or Missouri, you're eligible for blue circle health right now, but they are adding states quickly in 2025 so make sure to follow them at Blue circle health on social media and make yourself familiar with blue circle health.org. Blue circle health is free. It is without cost. There are no strings attached. I am not hiding anything from you blue circle health.org you know why they had to buy an ad. No one believes it's free. This episode of The Juicebox Podcast is sponsored by the contour next gen blood glucose meter. Learn more and get started today at contour. Next.com/juice box. The episode you're listening to is sponsored by us. Med, us. Med.com/juice, box, or call 888-721-1514, you can get your diabetes testing supplies the same way we do from us. Med,

Steph 1:58
hello. I'm Steph. I'm 37 I live in the UK. I've had diabetes for type one diabetes for 30 years. I'm married to my wife, Leanne. We have a 10 month old, nearly 11 months old, son, and I'm currently 28 weeks pregnant with our second son.

Scott Benner 2:17
Oh goodness, look at you. Well, congratulations, first of all, on both of them. Thank you very much. Awesome. And wait, you were diagnosed when you were seven years old. Yes, yeah, okay. And what was that like? What is your recollection of it?

Steph 2:30
Honestly, I don't necessarily remember a whole bunch of it. I remember specifically walking across the car park to the hospital, eating, chew its so chew its are this, like, fruity, really sugary sweet. And I like to think that was like the last legal sugar I could have had. And it certainly made my, well, first blood sugar test super high. I think I was like 33 something. So, oh, so we Yeah, UK, we use different units to us, so I think that's around 600 Oh, okay, but yeah, so that's pretty much all I can kind of remember from diagnosis. I'm

Scott Benner 3:10
going to ask you a question that you have no you don't have no way to answer this. But do you think you remember that because you remembered, or do you think people have retold that part of the story so many times that it sticks

Steph 3:20
to you? I don't know, because I was talking about it to my parents recently, because I've just sort of turned 30 years, like last month. So I was chatting to them about it, and they they didn't seem to recall it until I'd said it. So I think I do kind of remember it. I do remember other things, like the first couple of days we were injecting into oranges, which is nothing like human skin, obviously. Yeah, think things like little things like that I remember, but I don't really remember being in hospital or being freaked out or anything. So a

Scott Benner 3:52
person just told me recently that the nurse at their diagnosis give her a syringe and said, Go ahead, put it in my arm so you can see what it feels like. She was like, No, thank you.

Steph 4:04
That's, I mean, it's true to life, but geez, no, thank you. I

Scott Benner 4:08
think the Hospital found a sadist, and they were like, we have the perfect job for her. Yeah, absolutely okay. So you were diagnosed now, do you have other siblings, any other autoimmune in your family, or die, or type one? Yeah,

Steph 4:21
there's a bit of type one, but it's kind of relatively distant. It's like my mom's great uncle. It's my mom. Wait is it my mom? Yeah, my mom's uncle on one side and my mom's aunt on the other side. So yeah, they're both type one. As far as I know. They were old when I remember them, but apparently they were doing insulin. So

Scott Benner 4:41
how about like, celiac or thyroid stuff like that? No,

Steph 4:44
so there's a bit of thyroid as well in my mum's family. I think my mum her sister and two brothers, and my my my grandma, grandmother as well. There's some undiagnosed maybe rheumatoid arthritis, and I think maybe my grandma. Had, I think it's myelofibrosis, which I think can be autoimmune. Okay, so there's, there's a little bit around

Scott Benner 5:07
there, not a lot that I'm just used to very translucent Caucasians that don't do well in the sun. Usually have more of that going on when I'm interviewing, right? But we don't have a lot of sun here, really. No, no. I know. They don't give you, they don't let you have the sun there. No. So the Queen took your candy and then you what is. What does diabetes look like 30 years ago in the UK? Or do you even remember? Yeah,

Steph 5:29
well, so I started on and I I was cloudy and clear insulin. I don't exactly remember, but it was that must have been short acting and long acting, right? My parents seemed to think it was pig insulin, but that would have been like 94 so I'm, you know, I'm not going to not believe them. I'm not entirely sure. So, yeah, that was manually drawn up into one of those syringes, right? With the looking back, pretty big needle, from what I was told. And I don't really remember this very much, but I was injecting myself from pretty much day one, they my parents would mix, mix the dose together, and then I'd inject it. I think it was probably, I remember isophane being one of the insulins, maybe. But I think that may be mph, yeah, and maybe humulin, so. But either way, it was clear and cloudy, and you start to mix them together. But

Scott Benner 6:21
then your parents were, like, here you're seven, you're old enough to do this. You

Steph 6:25
were, I think I was just super stubborn, or like, Give me that. I'll do it sort of thing, which it kind of tracks,

Scott Benner 6:33
oh, that's held up throughout your life. Yeah, I'd say, so, yeah,

Steph 6:38
okay, gotcha help me out when, when something's actually fallen on me, I'll, I'll try until then,

Scott Benner 6:44
unless the car is on top of me, Scott, I really prefer to try on my own, if you don't mind. Yeah, yep, okay, all right, so we'll call you stubborn and then, but it works for you, right?

Steph 6:54
Yeah, yeah. Pretty much it's gotten into knowing how to control my diabetes, I

Scott Benner 7:01
suppose. Well, talk about that because, I mean, at some point you get off of that, that cloudy and that clear, right, and you move to a faster acting insulin. Do you remember about how old you were when you made the transition?

Steph 7:11
Yeah, I think it was somewhere around so the back end of primary school, so I would have been maybe nine or 10. Okay, pretty soon then, yeah, and I think then that was when the first I don't, I think there were reusable pens were around. I think, I think I vaguely remember having one with dinosaur stickers on it, nice, which sounds quite fun. So, yeah, that would have been around nine to 10, but there wasn't really any gone. Sorry.

Scott Benner 7:41
Okay, how long did you use injections? So

Steph 7:45
I only switched to a pump two years ago. Ooh. So, yeah,

Scott Benner 7:49
28 years Yeah, yeah. What's the process there? Is it just that, like things are going so well, and this is what I'm accustomed to. Or like a lady I interviewed the other day who told me, 100% not joking around, that she was always concerned, and these are her words that China would take control of her pump and give her too much insulin.

Steph 8:09
Oh, I mean, fine, if that's fair enough, hey. But no, I'm not. We

Scott Benner 8:16
joked about it for a while. I said, I'm trying to imagine someone in China going, hey, you know Tanya in Ohio. Let's get her,

Steph 8:23
yeah? I mean, it would you take some, yeah, real commitment to try and track down individuals for that reason,

Scott Benner 8:31
yeah? But, I mean, my point was that she was scared of technology, you know, and sometimes it's just because people are doing great. But what was your reasoning for switching and why did it take as long as it took? I

Steph 8:42
think it was just the way it was done for one thing. And one of my friends was on a pump, and he had tubes. And I couldn't be asked with tubes. I'm I'm clumsy for one thing, and I just couldn't stick the idea of having a tube hanging off me the whole time. So I just didn't really give it any thought, like diabetes nurses or and everything, didn't really ever ask me about it. Just didn't know. And then I started listening to the Juicebox Podcast, and learned about Omnipod, fact that they're tubeless and brilliant, and that got me to change my mind pretty much. I started to look into them, listen to the podcast more, and felt like it was a smart move.

Scott Benner 9:20
Okay. And so it feels like what you're saying is that I'm the reason you changed to a home.

Steph 9:24
Yeah, in a nutshell, all right, thank you. Hey,

Scott Benner 9:28
you're welcome. Are you just here to say thank you? Is the is the podcast over? Yeah, that's it. Can you imagine I could do this for another 10 years and I'm just completely out of things to say, and it just turns into people calling up and being like, hey, thank you. And I go, Oh, no problem. That's over. Do you have context for what about what was said or shared, or what you heard that made you go, I will try this. The contour next gen blood glucose meter is sponsoring this episode of The Juicebox Podcast, and. And it's entirely possible that it is less expensive in cash than you're paying right now for your meter through your insurance company. That's right. If you go to my link, contour next.com/juicebox, you're going to find links to Walmart, Amazon, Walgreens, CVS, Rite, aid, Kroger and Meyer. You could be paying more right now through your insurance for your test strips and meter than you would pay through my link for the contour next gen and contour next test strips in cash. What am I saying? My link may be cheaper out of your pocket than you're paying right now, even with your insurance, and I don't know what meter you have right now, I can't say that, but what I can say for sure is that the contour next gen meter is accurate. It is reliable, and it is the meter that we've been using for years. Contour next.com/juice box. And if you already have a contour meter and you're buying test strips, doing so through the Juicebox Podcast link will help to support the show. You've probably heard me talk about us Med and how simple it is to reorder with us med using their email system. But did you know that if you don't see the email and you're set up for this, you have to set it up. They don't just randomly call you, but I'm set up to be called if I don't respond to the email, because I don't trust myself 100% so one time I didn't respond to the email, and the phone rings the house. It's like, ring. You know how it works? And I picked it up. I was like, hello, and it was just the recording. It was like, us, med doesn't actually sound like that, but you know what I'm saying. It said, Hey, you're I don't remember exactly what it says, but it's basically like, Hey, your order's ready. You want us to send it? Push this button if you want us to send it, or if you'd like to wait, I think it lets you put it off, like a couple of weeks, or push this button for that. That's pretty much it. I push the button to send it, and a few days later, box right at my door. That's it us. Med.com/juice, box, or call 888-721-1514, get your free benefits check now and get started with us. Med, Dexcom, Omnipod, tandem, freestyle, they've got all your favorites, even that new islet, pump. Check them out now at us. Med.com/juice, box, or by calling 888-721-1514, there are links in the show notes of your podcast player and links at Juicebox podcast.com to us Med and all of the sponsors.

Steph 12:27
I think I just didn't know there was cheapest ones for one thing. Oh, okay. And the more I, I guess I listened because, because, I guess the year before I'd switched to pump, I changed insulin, maybe three or four different ones to try and eliminate Dawn phenomenon and and gaps, you know, where your long acting, your basal starts to run out inverted commas, and you can see gaps and stuff. I was trying to eliminate that. And I was really trying to do looking back, what, what a pump kind of does anyway. So I was doing corrections. I was trying to do, you know, I had a half unit pen. I was trying to do quarter units by just pressing it and pulling it out really quickly and hoping that was just a quarter ish,

Scott Benner 13:11
what you were doing, you're like, oh,

Steph 13:14
yeah, in it whilst, like, still removing the needle, yeah.

Scott Benner 13:19
So you're just like, you're judging by how much squirts out at the end, if, like, you did it well enough or not, like, that's a pretty big drop. I might have got it out in time.

Steph 13:26
Yeah, yeah, yeah. So, yeah, that was, that was kind of it, really. But I just, I couldn't get what, I couldn't get the control I wanted, then out of, out of just pens and insulin, that way. So, okay, yeah, I think. And I guess before that, the year before, I'd got on a CGM for the first time. So I only got one of those in about 2019 28 no must be 2018 2019 Okay, which was self funded for a good while. And that really showed me where, like I say, where the gaps were coming in, and where the peaks were, and where I was really crappy overnight. And you know, the morning that Dawn phenomenon, why the hell am I raising I've just put my foot on the floor. What's going on, all those sorts of things. So it really opened my eyes to being like, I can be a lot better than this. Yeah, and then, yeah, tubeless pump was the way to go. Okay, all right,

Scott Benner 14:17
excellent. Well, I'm glad to hear that now, the 28 years in between. What were your outcomes? Like, what were your goals? You know, what blood sugars were you shooting for? What did you consider a spike? Like, tell me about your care.

Steph 14:29
Yeah, I, I can't. I don't really have my like, a 1c results back further than, say, 2015 so I don't have it anything through uni at all. I to be honest, I'm not sure whether all the drinking I did at uni made me forget everything, but I don't really remember a whole hell of a lot. I do remember doing insulin, and I do remember carb counting, and I think the friend I mentioned earlier, he with the tubeless pump, with the tubed pump. Sorry. He. He when he joined uni, he was like, oh, you know, have you ever done carb counting? And I was like, No, so I guess Yeah, at uni. So I'd gotten to age 20, and I'd never done any carb counting or any thinking about it. I just done, I think of six units, say for dinner and six for lunch. So

Scott Benner 15:18
you, you get, like, cloudy, clear at seven years old, but at nine you've got a faster acting insulin. Or what are you using that? Is that just it, just regular, like, or are you like, when do you get, like, human log, I guess is my question.

Steph 15:32
Yeah. So I think it was just before uni, so I was maybe 17 or so, okay, okay.

Scott Benner 15:37
So you were just doing regular and mph, then for those times in between, yeah.

Steph 15:41
And then it was Nova rapid, and I think Lantus, maybe.

Scott Benner 15:44
But when you're saying then is that, when you were given that you weren't also given direction on how to use it? No,

Steph 15:51
not necessarily. I definitely was able to do corrections. Because I remember, you know, getting to say, I don't know, 14 or so, and I don't know what that is off the top of my head, I think that's maybe 250 and being like, I can correct for this now. So I do remember correcting high blood sugars at uni, but I don't think I ever really thought too much about anything that was above a 10. Okay, I

Scott Benner 16:15
want to tell people that at Juicebox podcast.com there's a calculator so you can, like, like, see what she's saying here. A 10, for example, is 180 blood sugar. Yeah, yeah. Okay. I'm trying to understand. I'm always trying to understand, during these conversations, that you go to the doctor's office one day and they're like, hey, guess what? Steph, great news. But they sound more like Mary Poppins, right? While they're saying it to you, and then it doesn't sound like me. We've got this fast tracking in so now you can crack blood sugars now, and blah, blah, blah, and then it's just here it is. God bless, see ya. Yeah,

Steph 16:49
I think so, because if it was around 17, then I was going off to uni. I was out of the juvenile diabetes care. I changed, you know, counties, I moved two and a half hours away from my parents. I just joined the GP, the local doctors practice, and they saw me, I want to say once every six months, maybe. And my a one CS, in fairness, throughout uni were, I mean, I don't remember what they were, and I don't have any record of them, but they were always like, yeah, you're doing fine. But now, looking back again, I must have been like roller coaster in the whole time, right? Like 100% again, I mentioned my drinking. I sometimes don't really know how I woke up, knowing what I know now about how alcohol works with insulin and everything I yeah, I think I made it lucky to get through some of those nights. What do

Scott Benner 17:42
you think your a one Cs were during, during college? I can't say uni. I'm sorry. I mean, I want, I want to, but like, it feels really weird Well, considering

Steph 17:50
they never were worried, and they never told me to make any real changes at all. I they must have been, I don't know, maybe seven or eight. So nothing to really flag. Anything particularly like, I didn't really start getting them, like tracking them, for one thing, until, like, 2015, not that long ago, really, I was well out of uni at that point. What the

Scott Benner 18:11
hell was the doctor saying when you tell him you're doing well, then doing well? What did that mean?

Steph 18:16
I don't know, but I know I always used to leave the doctor's office and be like, you know you've done fine, great, off you go. So

Scott Benner 18:24
you think it's you showed up, I gave you your prescriptions. You're not dead. You're doing great.

Steph 18:30
Yeah, yeah, I do think so, yeah, jeez. And until I really started to pay attention to it, and when I got a real job and finished uni and everything, I think that's when maybe I cite to pay more attention, and that's myself. And yeah. Okay,

Scott Benner 18:45
so let's, let's talk about the drinking for a second. What did you go to school for? What was your major forensic science? It's not important that you understand that at all. Don't worry about it. How many people are in a UK prison right now because you were drunk during class. Do you think,

Steph 19:01
Well, I don't work in it. For one thing, they're safe,

Scott Benner 19:07
let's say from you. Yeah, yeah. So help me a little bit. Did you come from a big family?

Steph 19:11
No, just me and my sister, Catholic? No, no, you weren't

Scott Benner 19:16
like, particularly held down by like, rules or anything like that as a child. Like, why do you go off and just, like, say, like, I wonder how much alcohol I can get in my face.

Steph 19:25
I think I turned 18 in July, and we start uni in September, so I hadn't and I had quite a baby face at the time, so I wasn't able to go out with my friends, you know, illegally when or when they turned 18 or before me. We can drink 18 here. And I think I just went for it. Just really liked being drunk. Can you tell me why I'm not

Scott Benner 19:49
quite I'm not trying to make you feel bad. I'm interested in your answer. Like, because, you know, like, the regular answer going to be back from if somebody's there, they're going to say, like, oh, it's an escape. From something? Did you feel like you were escaping from something?

Steph 20:02
No, I think it was just fun. Okay, it was, it was just fun to feel it's out of control, but it's not quite out of control. I suppose, although, you know, there were get carried home by your friends nights, for sure, it just it was fun. It was a lot of fun to feel free. I suppose other drugs. What it was, No, not at uni particularly, maybe bit of weed, but it, I wasn't really around it that much. So I didn't, I just didn't have the opportunity, I suppose.

Scott Benner 20:30
Okay, all right, do you still drink as an adult? Yeah, not at

Steph 20:34
the moment, but yes, yeah, much less since our son was born, much less before that also. But yeah, now I do still like to get drunk. Okay, not again, not at the moment, pregnant,

Scott Benner 20:45
but yeah, I'm not drinking now. For anyone who's listening, I just want you to just

Steph 20:51
double down, say it again. I'm not drinking because I'm pregnant, okay? But no, I do like to drink. I do, yeah,

Scott Benner 20:58
fair enough. I'm, yeah. I'm just like, you know, for people listening, I'm trying to make sure I I've got the story laid out for them so you were not considering your diabetes while you were, while you were at school, and you were and you were drinking a lot, but you never had an issue. No,

Steph 21:14
no, no, not really. I mean, any lows that I did have I treated myself with, you know, just dextro tablets or jelly beans or jelly babies or something like that. You know, I don't there were, there were definitely some nights that, again, looking back it, it looks like maybe I was spiked. And now, now I'm thinking back. I'm like, yeah, no, I just was having a super low again, yeah, to my reference earlier. I'm lucky, lucky. I've managed to wake up, I think, which I laugh, but it's probably not that smart at the time.

Scott Benner 21:45
I mean, is there a part I know you're laughing because you're alive still, is there a part of you that's sad about it, or sad about having done it? Just that idea of like thinking of your younger self, like being carried home and not sure where their blood sugar is?

Steph 21:58
I mean, I think the whole being carried home. Thing was, was almost part and parcel of what, at least my friendship group did. We took it in kind of, almost in turns. But I'm just, I'm just, I don't know how, how I got through it. I'm just feel incredibly lucky. You know, I'd be drinking like, you know, these you have alcohol,

Scott Benner 22:15
Pops, no. I mean, we might, but I don't know what you're saying.

Steph 22:19
It might be, like, is it West Coast, West Coast cooler? Is that? Do you guys have that

Scott Benner 22:24
I don't drink? I'm lost there? Like, yeah,

Steph 22:28
that they say on the back of the bottle, they come in, like, glass bottles or plastic bottles, and they're really sugary and sweet and flavorful, and they're about 5% alcohol, and they say on the back, don't drink if you're diabetic. Basically

Scott Benner 22:44
yeah, it says on the back Stephanie, this is, you don't do this next

Steph 22:48
to the little pregnant lady sign. There was a don't drink of your diabetic comment. I was drinking a lot of those. For one thing, I like pints of, you know, beer. So everything that was carby and bad. So I must have spiked like crazy during that time and then absolutely tanked overnight, because I'd wake up in the morning and be a perfectly decent, beautiful five blood sugar, which is like 90. So I'd wake up test and be like, great. Carry on with my day.

Scott Benner 23:16
Hey, I'm alive. Let's go well, you, I mean, in fairness, you learned that from your doctors. Yeah, yeah, true. Still standing. Doing great. Let's go. Yeah, absolutely okay. So when do you find the podcast? Is it a couple years ago, or is it longer than that? It took you a while to, like, say, I'm gonna try a pump. No,

Steph 23:35
it's, it's probably 2020, so during COVID and things, because, you know, I started to start listening to start listening to podcasts, and I started to drive more to work. So I had something to listen to. It must have been when I started to look up pumps and or or CGM or something that I came across. It got onto the pro tips. What kind of

Scott Benner 23:53
I don't need to know exactly what you do, but what kind of work do you do that went during COVID? You're like, oh, I now drive more to work. Oh,

Steph 24:00
no. So I we moved, oh yeah. So we moved further away, so I was driving further to get to work. I work for like, a CGM, CGM, fast moving consumer goods company, you know, Unilever, they make Dove deodorant or and, oh no. It's not called dove where you are. This

Scott Benner 24:19
is fun. So you like deodorant, but it's called something, you think of it as something different than what it's called. Where it's here, yeah,

Steph 24:26
it's called, sure here, it's called Rex owner and other companies. And it's called, I think it's degree in America, okay,

Scott Benner 24:32
I know degree. I don't use it personally, but I'm aware of it. Well, do you get it for free?

Steph 24:38
No, that sucks. With those workshop you get it cheaper, but no, no, but they make lots of an awful lot of other stuff. It's a huge company. Okay, I've probably sold out to the big man somewhere down the line. Now,

Scott Benner 24:52
got the man's got me by the short and curlies. I can't get away. Okay, that's

Steph 24:58
it. So, yeah, I. Just I started driving further because we moved so it was, you know, an hour and a half, two hour drives, which I'm probably not that far for you guys, but

Scott Benner 25:07
Well, that's like, all the way across England, doesn't

Steph 25:11
it? It's from the middle to the edge. No kidding, yeah. So yeah, plenty of time my

Scott Benner 25:15
daughter drives, now five and a half hours to get to school, which is only on the other side of the state that's next to us. So that's crazy.

Steph 25:22
Oh, he's crazy. Yeah. Okay,

Scott Benner 25:26
well, okay, so you so you find the podcast. You start listening. You know you're hearing different ideas. You seem like a very pleasant person. I don't know if you know that about yourself, right? Like, thanks. Yeah, no, of course. Do you so does it give you like, do you get angry? Are you like, I can't believe nobody's told me about this stuff for so long. Are you just like, oh, new thing. I'll try it. No,

Steph 25:43
yeah. I think it was, like, new thing. And I just, like, sucked up all the information so I could go and go to the doctors and say, I want this, and this is why can I have it please? Because obviously, here we've got the NHS, so there's a lot of blockers to getting technology and getting new, better, different technology. So you had to really, like tick a load of boxes to fulfill the criteria to get a pump to then next step, it's you have to do a load of classes and learning and things like that. But I basically learned it all through the podcast. So I could go to the nurse and say, I know how to do this, this and this and this and this, and this is what it will help me with. Because we do some, well, we don't, at the moment, we do things like we do lots of different sport, relatively sport, but we do white water kayaking. Okay, so it's like you're in an all covering dry suit so you don't get wet. So things like doing manual injections when you're wearing one of those is impossible. For one thing, the pump, getting the pump, that was one of the reasons for that. Working in a lab was another reason, you know, I can't necessarily be in and out due to doing injections, doing blood tests, you know. So

Scott Benner 26:55
pulling out a controller or a phone or something is doable. Yeah,

Steph 26:58
exactly, yeah. So I just sucked up all the information and took it all to the doctors and the nurse and shoved it all back at them, right? And, yeah, excellent. That's awesome. That one terrific.

Scott Benner 27:11
So you said you just started kind of tracking what your a one Cs were not long ago. Like, what, what have they been since you've been paying attention to them? Yeah?

Steph 27:20
So like 2015 is when, when I sort of started tracking, they were like six low sixes. They had a couple of mid sixes, low, low sevens, pretty much all the way through to just before starting the pump, I was around 5.9 and then started the pump, and then it was coming down the Oh. And actually, just before it was 6.4 like, beg your pardon, then it was pardon, and then it was like 5.7 5.6 4.7 5.7 5.4 so it was, you know, coming down when soon as I switched to the pump, and I'm on a closed loop as well now, so I use Android APs. Oh, cool, yeah. So it dropped from 5.7 where it was hovering down to 5.4 when I started that,

Scott Benner 28:01
learning about carb counting in college, then was a big deal for you. Yeah, yeah.

Steph 28:06
I think meeting, meeting my friend Kenny, he was, he was a, he was a big change for me.

Scott Benner 28:11
Oh, that's awesome. So you feel like you were doing pretty well in that time in between, you just weren't, kind of like you weren't checking on it as often,

Steph 28:19
yeah, yeah. And I think maybe having that other diabetes, literally, and kind of the room next door made you a little more self aware,

Scott Benner 28:24
you know, why? Like, you have any insight, I think,

Steph 28:28
somebody to talk to about it, who actually got it, I guess, and bounce ideas off and be like, Oh, have you ever had this? So try this, you know, that kind of stuff, I suppose, right. Yeah,

Scott Benner 28:39
makes sense when you start thinking about having kids. So I if I heard right, because in the beginning, it always takes a minute to adjust to accents. So I'm pretty sure I heard that you're gay and that you're married to a lady and that you have a baby, but that you're pregnant. So IVF, I'm guessing,

Steph 28:57
yes, yeah. So my wife, Leanne, carried a first son, and this is my go.

Scott Benner 29:04
Did you flip coins or how did you decide?

Steph 29:08
Well, no, so I'm I'm just a year older. I'm like 37 so I'm not that much older, but I'm just a year older. So we started first. With me. We tried injury, uterine insemination first, which is essentially throwing the sperm into the womb and seeing what happens. Wait, did you do it yourself? No, no. So through a, I think is it called a cannula? I can't remember, but

Scott Benner 29:30
you went to, like a doctor or something like that. Yeah. Have you heard the episode about the couple who tried it on their own? I don't think so. Oh, it's awesome. Like she talked all about it. And anyway, it was, I can't, I can't go over the whole thing. It was one of my most delightful conversations. I feel like, okay, yeah. But her and her partner were like, they were like, they had a friend donate, and they were, they were like, just try to together. Oh, I was like, Oh, no kidding. So it was just a very. Like, somehow heartwarming and amusing story at the same time. But, yeah, yeah, it was really nice, actually. So you rock paper scissors, she gets to go first, and then you decide, is the plan always to have two and you're going to do it the way you're doing it here? Or were you like, Let's get one and see how it goes? Yeah.

Steph 30:16
Well, I mean, maybe there's always dies, but yeah, the plan was always kind of have two and try one each. Okay, you obviously never know, never know how it starts. We just got the advantage of having two wombs, so we've got, we're gonna have them quite close together,

Scott Benner 30:32
right? Yeah, you don't have to, like, space them out, like, you don't need the time to recover. No, exactly. It's awesome. She doesn't have diabetes, right? No, no. So was that part of the initial decision?

Steph 30:44
No, no, it was. It was literally just to try me first, and the first three tries of IUI didn't work, and I had to have a fibroid removed. Oh, okay, so in waiting for that, we didn't know how long we'd have to wait for the appointment to the operation, the recovery, so we just decided, oh well, sure, let's go and see how your womb was looking.

Scott Benner 31:03
She's like, I'll take care of this. But I'm imagining there was a sadness there, right? Yeah,

Steph 31:09
I think, I think it was a little bit, yeah, it was. It was probably just like, right? We'll get this fibroid removed, and then we'll see how we go. But, okay, yeah, yeah, maybe there was, but at the same time we, we wanted kids, whichever way. So that was, that's the ultimate goal. Really

Scott Benner 31:26
awesome. And then you, then, now, did you have to have a bunch of treatments and, like, what's that like? What's IVF like with type one?

Steph 31:32
Yeah. So it's, it's no different other than, yeah. So all the drugs and everything are the same. The The one difference is that the fertility company wanted a letter from the diabetes consultant to say it was going to okay to go ahead with a pregnancy, which still annoys me, to be honest, because you wouldn't be able to stop a heterosexual couple trying. Why would you need a letter for

Scott Benner 31:53
me? If someone came in there without diabetes and said, you know, we've got this sperm, I need you to put it in my lady over here and let's make a baby, they wouldn't say, What's your blood sugar? No, right? And that person, by the way, could be walking around with pre diabetes. Nobody would know. Yeah, yeah, yeah, interesting. But they made you prove. What was the proof that they were looking for? Or was it just the doctor to, like, take them off the hook?

Steph 32:16
I think so probably, yeah. But it was just that the control was good enough, essentially, okay. And you were doing great already, yeah, yeah, yeah, because we'd been trying bi UI beforehand, so I'd been cracking down kind of even more so before that. Okay?

Scott Benner 32:35
And you were a pump. You were wearing a pump during the pregnancy. Now, yes, I am, yeah, Omnipod manual, or, like, the dash, or using Omnipod five.

Steph 32:43
No, the dash, and then, yeah, Android APS, okay,

Scott Benner 32:46
oh yeah, I'm sorry, Dexcom, right, yeah. And so Dexcom g7, six. Do they have the seven there yet?

Steph 32:55
I've not seen any around, and I've not heard of anyone in our, like, little WhatsApp groups having it yet? No, there is talk of it, but I don't know anyone actually using it.

Scott Benner 33:05
I'm going to make a left turn here. How do those WhatsApp groups work out? Everybody always tells me, Oh, I'm in a diabetes Whatsapp group. I hear it all the time. Like, is there? Like, is it a few people, are they local to each other? Like, how to like, how do you guys talk to each other? What's it for?

Steph 33:19
Well, I mean, it's, I guess it's like minded people, or like living people. It's just we throw questions. I think there's about 2020 Oh, sorry, I touched the mic. 2025 people. They're actually not local to me. Well, relatively local. They're in, like, Sheffield, and I'm in Yorkshire. It's maybe two hours drive away, but we just throw stuff out at each other, like, Oh, hey, I don't know how to do this. I've got a problem with this on my pump. I've got a problem with this. MDI, any ideas how I can, you know, I've got I'm ill today. Any idea what the Sick Day rules are?

Scott Benner 33:56
Are people kind to each other? Do you ever have problems with what they call assholes?

Steph 34:02
No, no, not really, at least not on this group. No,

Scott Benner 34:05
because I the reason I ask is because I've been approached a lot of times, and people are like, Scott, you should start a Juicebox Podcast, Whatsapp group. And I'm always like, Oh, that feels like more for me to do. But so like, how do you get into it? Can anybody get into it? You have to have the link to get in. Is it moderated?

Steph 34:23
Not moderated? You do have to have the link to get in. But I met, I did a Daphne course. So it's a Yeah, dose, yeah. So I did one of those. Said I was going to get, you know, trying to get pregnant. And one of the ladies on that said, Oh, I know a lady that's been pregnant before, or a few ladies, she has a WhatsApp group and passed me on to her. She did. The lady added me to the group. And yeah, they meet regularly. Actually, I don't because I'm that bit further away, but they meet quite regularly, and it's just, I think, a nice place to be around people that are the same.

Scott Benner 34:56
I'm inclined to get behind it. But. Because the group experts that are in my Facebook are you in my Facebook group? Yeah, yeah. Okay. So there's some lovely people that donate their time to just kind of look after the group. And, you know, flag things that look like they're going wrong so I can see them. And, you know, help people with like, oh, you should try this episode of the podcast. They're really, really great people, but they all have a chat together so that they can, kind of, like, you know, stay connected. And I've been told by more than one of those people that it's turned into, like, a lovely little community just for them. Yeah, yeah, oh gosh, yeah. Do I have to do this? Like, what would I do? I just start it, and then I'd be like, here, don't kill each other, like, like, when you give your kids a BB gun. Is that what I would do?

Steph 35:42
Maybe, yeah, I think I also, I think there's not, you're not allowed enough. You wouldn't be allowed enough people in the group. I think there's a limit to how many people are in the group. So, oh, really, yeah, so I don't think you'd have enough.

Scott Benner 35:53
Oh, yeah, my face, my thing's pretty big. Okay, I'll look into that. Yeah. IVF, not much different. It's not different as far as the drugs you get. So did they impact you, or, like your blood sugars? Is there anything special to do, to do IVF with, with insulin? No.

Steph 36:09
So I thought there would be. I thought I would have to, I thought they would start impacting me, because one of the things you have to take after you've had embryo transfer is progesterone. So I thought that would probably be like a little hidden blood sugar booster. It did eventually, but, but no the drugs themselves. So we had, you've got, like a stimulation drug, which stimulates more follicles to grow, containing more eggs, or containing one egg, but more follicles containing an egg, and then you have, and that didn't seem to have any effect on me whatsoever. Then you have, I think, five days after you start taking that, you have one to stop you ovulating. Because if you imagine you're growing loads of eggs in there, and they're growing nice and well, and then you just ovulate them all out, that would be, be a nightmare.

Scott Benner 36:56
We've got all the where'd they go? Oh, come on, exactly. Yeah.

Steph 36:59
Or if, if you happen to be in a straight couple and decided to have some fun, you wouldn't want all of those fertilized at the same time, right? That would not be good

Scott Benner 37:10
either, the living dead with babies. Just like, yeah, yeah,

Steph 37:15
right. So yeah, you're on those two injections. And again, neither of those seem to have any impact on me whatsoever, which was great. You then sort of get to the point where you're, they're ready to collect all the eggs, and you have a trigger injection to do, which triggers ovulation. But that didn't affect me either. And then 36 hours after that, they collect your eggs. So I'd made a separate pump profile for that, actually, because it's, it's a conscious sedation. The egg collection only lasts maybe 15 to 30 minutes. But I'd made a a separate pump to make sure my blood stayed flat during it, okay, so essentially making it a little more aggressive, all right? Um, so if I did start to peak, just it would, it would hit it a little harder, yeah, but I didn't see the end of the operation because I asked for more drugs, so they put me asleep.

Scott Benner 38:05
Was it uncomfortable? Yeah, I

Steph 38:09
hadn't heard of anyone else being awake properly, awake and able to look at the TV screen, watching it happen. And I think it got to a point where I could just, you know, see and feel, and that was a little too much, so I just Yeah, her nice disc. Grab some more drugs,

Scott Benner 38:24
please. I'm tapping out. That's a good I'm good. I'd like to go to sleep

Steph 38:28
now. Yeah, I've seen the eggs. Thank you. Bye. I watched

Scott Benner 38:32
my carpal tunnel surgery on the monitor. Oh, I didn't get carpal tunnel surgery because I had carpal tunnel I had a bad injury on my hand, and they did carpal tunnel surgery to alleviate the problem. So, but I got to, I got to watch it. I was fascinated by it, so they, and they just blocked, like I just couldn't feel from my shoulder to the tips of my fingers, yeah? But you were like, No, that's okay. I'm good. No, I seen enough. Yeah, that's it. I have a memory. I'm gonna go now, yeah, exactly. How many times did you have to do IVF before you were like, the insemination before you were pregnant?

Steph 39:08
Like, yeah, fortunately, just once, yeah. So we got two, two embryos that grew were able to be frozen. So we did the egg collection in January, and we went for transfer in April. Because if we'd had done it fresh, we would have had Irish twins. It would have been less than 12 months apart. So yeah, we didn't want to do that. Yeah, yeah, we first go, which was very fortunate, awesome, but good for

Scott Benner 39:34
you. Do you think you'll use the other egg one day or no,

Steph 39:36
we think we're good with the two. I gotta tell you, sorry. We've still got another one, but I think we're good with two. Yeah, I have to be

Scott Benner 39:45
honest with you, I was talking to a guy yesterday, was like, one of seven, and I'm like, oh my god,

Steph 39:50
yeah, that I don't understand many things about how more than three, like, how

Scott Benner 39:56
to manage all those kids. Or are you wearing the same sweatshirt? You were wearing seven years, you know, 17 years ago, because you can't afford another one. Well, that's great. So how far along are you? Are is that? Are you far long enough to tell us?

Steph 40:09
Yeah, so 28 weeks today, actually, today. Awesome. Oh, you're getting close. Yes, officially into the third trimester.

Scott Benner 40:18
How about that? You got like, two more months, I know crazy. Nine more weeks left at work. Do we know what kind of a human is in there? A boy or a girl? Yeah, we're having another boy. You're on the podcast today. Steph, could tell me that this little boy's name is going to be Scott. Is that right? We could maybe stretch your middle name. Oh, my middle name is terrible. You don't want my middle name, so you'd have to put Scott. Yeah, exactly. Great. I'll listen, if that happens, I just want you to know you'll be crowned the best listener. You get to come on once a year and talk about whatever you want. It doesn't matter. You know, that's all No please, no pressure. I do have a puppy named after somebody now, also also Arden. Somebody named a baby Arden because they heard the name on here.

Steph 41:03
Yeah, it's, it's not a name I've ever heard of until I started listening,

Scott Benner 41:07
yeah, and then I told Arden, and she was like, Oh, I wish that wouldn't happen.

Steph 41:12
Yeah, it's fine that it is, just don't tell me, yeah, yeah. She's like,

Scott Benner 41:17
I don't know how I feel about that. Yeah, but, oh, but seriously, congratulations. You don't need to name your baby after me, even though, I mean, does sound like I am? The reason why you're using it? Yeah, it's probably not a big enough reason to name Can you imagine? Like, Fast forward 20 years you're 57 years old. You're at your your kids graduating from uni, see, I said it Hey, and he looks at you and he goes, Mom, I've never asked you, where'd you get my name Scott from? And you've got to go, I named you after a podcaster.

Steph 41:49
Well, you know what? Though that might be very cool. Then

Scott Benner 41:51
maybe, I mean, I don't know, like, once again, he'll come back listen to the podcast. Like, dude, there's some old guy talking about diabetes. This is who I'm named after one and he's American on top of everything else. Yeah, I'm sure that'd be fine. Oh, that part's okay. I didn't know, yeah, by the way I looked while we were talking, you can have 2000 people in a whatsapp community. Oh, that's more than I thought. Yeah, it's not enough, but it would probably make it on, like, unruly if there were too many people in it to begin with, though.

Steph 42:19
Yeah. I mean, to be fair, I don't even know whether people would read half the Yeah. We

Scott Benner 42:25
just it would just blow by them, right? Yeah. Like, there's an argument to be made that you make, like, a juice box, Omnipod community, a juice box, Dexcom, like, like, do that, right? Maybe that's not a, I don't know, or even,

Steph 42:39
like, narrow it down further, anyone on loop by anyone on the other kind of loops.

Scott Benner 42:43
Yeah, jeez, that sounds horrifying to me. Does this cost money? Do I have to pay for this? No, no, you say no, but I don't know. There's also a business version of WhatsApp which would let me moderate it, and then I gotta hire a moderator who's paying for that. That Are you? Are you? You want to pay

Steph 42:59
for it? No, like your ads. Get ads for paying my

Scott Benner 43:04
electric bill. You wanted to pay for this too?

Steph 43:08
Yes, you're gonna have to keep going for a few more years. How much

Scott Benner 43:12
more content you want me to make? I'm I'm in this room recording podcast night and day. Oh my gosh. What made you want to come on the podcast?

Steph 43:21
Uh, yeah, well, to be honest, it was, I mean, at the time, when I reached out, it was like, I thought maybe I could offer some advice. That's, that's not necessarily the word I'd use, because it's me, but offer some, some comment on IVF and pregnancy and what it would do to your blood sugars. So, yeah, the drugs themselves didn't really do anything, but when the pessaries, the progesterone PES sort of started that did, that's when it started to kick in, which, in some ways, is kind of to be expected, because that's kind of what happens around a lot of people's periods. They once that started to kick in. I needed to increase my profile, 10% up. You know, 5% 10% 15% up. Then I needed to start doing more, Bolus for meals, correcting after them more. So just all of those sorts of things started to kick in. And those pessaries, those progesterone pessaries, last up until 12 weeks. That whole first trimester is a lot of back and forth. In some ways, because you've got, you're battling with, maybe, well, you've got the progesterone from the pessaries, but you've also got your own progesterone, I'm assuming, being made. So maybe, like a double, double hit, yeah. But then there's also where it starts to kick in. And it did also kick in for me, where you, I don't really know whether you start making insulin. So I have heard it from the podcast, and I've heard it from others too, that, like you, maybe start making insulin again, which I did see also, but not necessarily, until after the pessaries had stopped. So Well,

Scott Benner 44:54
hold on, what do you walk me through that? What are you saying that? So they they give you something. And you feel like your insulin resistance, or like your insulin needs went down, or you because how would you know if you were making more insulin or not?

Steph 45:07
Well, I've read Jenny's book, actually, I I've hired Jenny, actually, to help through this pregnancy, which is lovely. She's an absolute legend. Through her book and some of the podcast stuff, I think I've listened to you're either more sensitive, and it may be that, or you start because your immune system backs off, you start making insulin again, maybe Okay, which I didn't, I didn't expect to happen, because I've had it, you know, nearly 30 years, or 30 years now, and I didn't really expect anything to be left in the little pancreas there, but just kind of around the time when the progesterone pessary stopped, I just had absolutely massive sensitivity. I could eat, you know, you know, a huge ice cream and some jelly sweets and not need to do any insulin for it, which sounds on face value, kind of fun, but you constantly feed, eating and feeding, feeding your lows you don't really want to keep eating. So I think that's probably one of the things that would be maybe a little watch out once that progesterone is like, you stop taking those progesterone the series, then that might start to kick in. And it was quite quick.

Scott Benner 46:19
Yeah. So the theory is that your immune system, which is trained on your beta cells for reasons that you know or whatever are, suddenly, like, there's a baby in here, and then you hear a lot, right? Like a lot of pregnant women don't get sick usually, yeah, right? Like, healthiest time in my life, except for the big thing growing in my belly. Like you hear people say that, right? So is the idea that it's possible that you're the immune attack on, like, beta cells is varied by

Steph 46:48
this, yeah, apparently, yeah, that's crazy. Okay, yeah. And it was, it was always, it was around, like, Bolus. Majority at the time it was, you know, I'd, I'd have to do, I'd do my regular Bolus, so then I'd do less the next day and less the next day, and I'd still be like fighting it. We went on holiday for a couple of weeks in June, where I think I was, I don't know how pregnant I was, then I was able to eat just everything I you know, it was wonderful on one hand, but on the other hand, it was, there was about 10 weeks, I think there, it was hard, on the other hand, because I was just constantly having to have dextro sold. Like, I, you know, do you have dextro solar, the, like, Lucas a tablet? Yeah? Sure, yeah, yeah. I just had, I've never been through so many in that like, sort of two, three month period. I've never eaten some money in all my life, okay,

Scott Benner 47:41
yeah? Because just you needed it constantly, yeah, yeah. Listen. A tiny bit of Googling, I found an article that the conclusion of the, you know, I'm not going to read you the abstract and all the other stuff, but the conclusion is, in summary, we have found that some C peptide secretion that is an indirect measurement, of course, of endogenous insulin production is regained in women with type one diabetes during pregnancy, which might be attributed to elevated peripheral levels of PRL. PR, okay, one or GCG, I mean, look more into that on your own, if you like. But that's the real Yeah. Like, I'm not, I don't pretend to understand it one way or the other. But that's, I mean, that's an interesting thing in general, yeah.

Steph 48:25
And it, it, it definitely happened like I, I was, you know, before pregnancy, I was maybe using 3040, units a day. And by 12 units, I was by 12 units. By 12 weeks, I was somewhat like 26 to 33 units a day, and I was eating more, you know, yeah. So it's, it was, it was pretty drastic, really. I think at one point it went down to because, because of the APS system, you don't necessarily have a fixed basal rate, because it can adjust it. I was down to something like 444, units of basal, right? And, you know, before it was, you know, maybe 12, okay, boy, it's crazy, yeah, yeah, it was, it was, it was huge, really. I mean, now it's completely different at 28 weeks. So I went from, yeah, take 2430 units. Now at nearly, I think I'm, I don't know. Let me just have a little look. I think I'm at some like, I don't even know, yeah, yeah. I think it's like, over 100% more. So which is, yeah. So I'm on about 55 units, say. So I've gone from 24 ish to 55 right? And most of that has been in the last three weeks or so.

Scott Benner 49:45
And then you're expecting that to kind of stay here till you deliver the placenta, right? Well, to be honest,

Steph 49:51
I expect it will probably raise more again. I think you're supposed to plateau somewhere around maybe 36 weeks. You get a little bit of. Leveling off. What

Scott Benner 50:00
are you able to keep your a 1c during the pregnancy?

Steph 50:05
Yeah? So I'm like, 5.3 5.1 look at you. That's awesome. Yeah? I mean, it's taken a lot of work. And like I say, I've got Jenny and Integrated Diabetes on board, which, honestly, she's an absolute rock star, yeah? Just, we can't be NHS here. Just, God loves the NHS seriously, but they don't have the capacity to give the kind of care me personally need, because I feel like I've and again, the podcast has done a lot for this for me, but I feel like I know too much that they can't actually help necessarily give me any advice,

Scott Benner 50:36
right? There's still a ceiling above your knowledge, and you need somebody else to help you with it,

Steph 50:40
yeah, yeah. And then that's where, like, Jenny comes, swoops in, like, once a month, but she's, we have emails maybe once I should week.

Scott Benner 50:50
Okay, I actually just recorded with Jenny this this afternoon already, yeah. But what do you think she gives you? Like, I know her, not like, I set aside her knowledge. Like she, she kind of knows how to react, but like, is she a sounding board, or is she someone who looks at you and says, Let me see this. Looks at your graph and goes, we're turning this up this much. I think

Steph 51:09
both, depending where you are with your knowledge. I think she does both because I and I've learned. I know I've learned as these 28 weeks or 20 weeks I've been talking to her, I've gone on. I know I've learned, because I'll go back with a bit of an analysis of what I think I need to do, and she'll say, Yeah, that sounds good. But do this and it will be stronger, you know, it'll be a bigger change, yeah, and that's possibly a bit of fear, because I'll, you know, I'll be changing my basal point two, or, you know, you know, small amounts, or my insulin sensitivity factor, I'll be changing 0.01 and she'll come in and be like, No, we changed that by one. And I'm like, Whoa, okay, but it works, yeah, so yeah, it's, she's she's just completely made it easy. Just she goes in, looks at your graph, looks at your profile, and says, change this at this time, this at this time, this at this time and try it out, and it's it's been amazing. It's

Scott Benner 52:04
tough. I mean, it's got to be tough. I don't know if it's tough because I don't have diabetes, but it has to be tough to make big changes then. So it must be scary. Like Arden came home for a long weekend last night, and we went to a restaurant. When she got home, there was a bunch of her friends, and and we're sitting there, and I and we ordered, and I'm looking at her, and I'm thinking, she gonna bowl us, like, like, now's the time. Like, you know what I mean? So I wait a couple minutes. I see her talking with her friend. She looks tired from driving home. And I look across the table, and I just, I point to my phone, and she picks her phone up, swipes it, goes to look at it, and just, you could see her face. She's like, here, and she just gives me a phone, just like, you know, like, you know, I bitch at him the whole time I'm at college. Leave me alone. I know what I'm doing, but she was like, whatever. Here, man, take it. And so I made a Bolus. And I mean, she's using trio, so, you know, you're using Iaps, like, you get the vibe, right? So, yeah, I'm like, there's some french fries along with what's on the table. I'm figuring, like, she's gonna hit those fries. I actually entered in carbs and fat and a little bit of protein into the algorithm to give it all like this, this working, and she had, like, a little rise to 150 and came back down. And I thought, okay, I could have put more fat in, and I didn't, but still, 150 like, you know what I mean? Like, she had like, boneless chicken wings and like, fries and some other stuff. Like, I was like, I thought that was awesome, you know? And then I look back at her from like, you know, when she's at school, and I'm like, Are you like, Pre Bolus thing? And I know she's not, like, you know what I mean? Like, I know she's just like, she's too busy and she's overwhelmed, and she's at school, and she's probably running around, running around, sitting down and bolusing as she eats. And I think that's the Now, listen, she's still gonna keep an A, 1c, in the mid sixes at college. If you were here for a night, like we were having dinner, do you think you'd have the nerve to be like, here, Scott, just give it a whirl or to somebody else. Like, if you were with Jenny for a night, I Jenny would be like, Here, take it right? Oh,

Steph 54:06
yeah, take it forever.

Scott Benner 54:10
Imagine if that was her, like, that was her retirement job, like a really rich person with diabetes, like she just hung out with them and managed their diabetes for

Steph 54:17
them. Yeah. I, I think, I think that wouldn't be too far, far of a bad deal, really. Yeah,

Scott Benner 54:22
yeah. Can you imagine I one time somebody contacted me privately and offered me an obscene amount of money to come to their house for a week, for a week, yeah, and teach them how to take care of their diabetes.

Steph 54:34
Some consideration all

Scott Benner 54:37
the people out there who like don't like me, I 100% immediately turned them down. And I said, Keep your money and listen to the Pro Tip series. I basically think it's gonna the same thing is gonna happen for you. Yeah, yeah. And it was an obsession. It was a lot of money. And I was like, that's nice, but you know, no thank you. Now listen. Anybody listening who has a lot, a lot of money? You. Still free. Feel free to reach out, but,

Steph 55:03
yeah, you don't times change. No, I would probably

Scott Benner 55:05
end up just saying to you, that's very kind, but you know, I would just try the Pro Tip series if I was you. Yeah? Plus, I don't want to be murdered in someone's home. So,

Steph 55:14
yeah, big consideration.

Scott Benner 55:17
Most of you are all lovely, but a couple of you are out of your minds, and I don't want it to be one

Steph 55:22
of you. Yeah, absolutely. And it guaranteed would be, wouldn't it? Oh,

Scott Benner 55:26
oh, for sure. There's someone out there like, I can kill this guy for just this much money. I was gonna be great. So your pregnancy has been following along. You've been using Jenny to take care. You got a couple more months till little Scott comes out, and then yeah, is Scott even, like, a British name? No, right? Yeah. Is it Oh yeah. What does it sound like in with your accent, Scott, I might like it better than when I hear it here, because it's a little more melodic when you say it, oh, it's so like Kurt. You know what I mean? Like, Scott, yeah, like, it's a, it's a, two sounds, not great. I don't know. I don't

Steph 56:07
not the point. Well, it's your own name. I think as well, sort of, you don't necessarily have the best of feelings for your own name. I think sometimes I hate mine. So really, do you think that's true? Yeah, yeah, you can pick fault with it, because it's there forever, isn't it? So you're just looking at it.

Scott Benner 56:22
Yeah, I to your point. Meanwhile, I have no idea what I would name myself if I could, like, No, make up my own name. My middle name is horrendous. I will never that's actually a running joke on the podcast. So now there are people like, just say it. But I, I

Steph 56:36
will not. I was just thinking, I don't think I know it. No,

Scott Benner 56:39
you don't, and you're not going to, not from this, yeah, I'm sure there's somebody working at the IRS who's like, I know his name. Yeah, I'll

Steph 56:47
just join the podcast and drop it in one day. There are people another podcast, the WhatsApp group,

Scott Benner 56:51
yeah, yeah. That would be, I'd be like, well, I can't believe you guys figured it out. But there are people who listen that are, like, in the Secret Service and, like, there are people who have all kinds of crazy jobs to listen to this podcast. So it definitely, yeah, it's pretty and it's never who you think. Like when someone comes up to you, they're like, I work for this. You're like, Get out of here. Really,

Steph 57:11
that's funny. You meet all sorts of, like, interesting, fun people through this.

Scott Benner 57:15
I, honestly, I do. It's a, it's a real benefit for me, just, it's a great, great. Like, benefit of the of the podcast, meeting people, as long as they don't murder me in their homes. Because, yeah, I was gonna say, what else do you want to talk about? But I guess my real question is, what are you expecting? Like, what's your expectation for these last two months? What's your expectation after giving birth? Are you going to breastfeed? Like, are you planning ahead for that? Yeah,

Steph 57:41
I think the next two or three months, I think I am, like, sort of said, expecting a lot more insulin to come into need. Like, especially this, this last couple of weeks, just the increase has been kind of crazy. Like, I mean, I don't know what's it's crazy for me, changes of, you know, carb ratios from 14 to 10 and or six to 5.2 for just that, they're big, they seem massive to me. You know, like 20% change is just on a whim overnight. Seems absolutely bizarre. I'm expecting that to kind of keep going, probably Yeah, and then yeah for birth, well, we had a scan, actually, on Wednesday, and he's measuring a little big which is, yeah, I think

Scott Benner 58:25
medical stuff. It was that, like my vagina, or what were you? Are you thinking just now?

Steph 58:32
Yeah, a little and also, the doctor kept saying, and this is definitely not the medical term, but it is what she wrote in my notes. Big baby on board.

Scott Benner 58:41
Did she let you see that? Yeah, yeah.

Steph 58:44
And she used it three or four times. And I was like, Stop, please. Stop saying that. Hey,

Scott Benner 58:49
honey, Listen, can we find another way to, like, jot that down that's making me upset. Yeah, just if you ask Arden about having a baby, the only thing she'll say is like, I don't want that to come out of my vagina. And I was like, okay, so big baby, but your a one, Cs are nice, right? I

Steph 59:05
know, yeah, it's, it's, it's a bit confusing, for sure. Well, not confusing, because maybe it is the way it is. But I think the the obstetric consultant was like, You need to get your diabetes under better control. And then I went over to the next room to the diabetes consultant. She was like, you're essentially, like, top diabetic I have under my care, and offered me no advice. Yeah, thanks

Scott Benner 59:30
for all the help. Everybody. Yeah, Jenny, Jenny, so Jenny is your doctor, basically, Yes, Jenny is basically

Steph 59:38
my doctor, yeah. So I just, I'll keep it going. And I've obviously seen a birth and I understand where it comes from, having also got one, so it didn't put me off.

Scott Benner 59:51
Good to you. What a trooper. Do you know the donor? Like, do you have like, an idea of, like, birth weights from other, like, family members?

Steph 59:59
No. No, not at all. We just, we know, like his weight and his height and stuff like that. But nothing of, yeah, nothing like that.

Scott Benner 1:00:06
Is your donor, the donor from your first

Steph 1:00:09
Yes, so yeah, just about say, and Rory was like 8.5 pounds, so pretty, pretty regular. So yeah, we'll just have to wait and see if it ends up being a cesarean, because too big. Fine. Yeah, we'll just go that way. But, yeah, breastfeed, and I'd like to do that, hopefully that that pans out. I know there's a lot of snacking involved around breastfeeding to keep your blood sugars up, so I'm quite looking forward to that. Now I can't eat carbs in the way I used to be able to do. You miss them. Be

Scott Benner 1:00:41
honest, you miss them more. You miss the alcohol. More. What do you miss

Steph 1:00:44
more? Probably the carbs. There's

Scott Benner 1:00:48
a telling statement from a lady who was like, they used to carry me home.

Steph 1:00:53
I've grown up so much.

Scott Benner 1:00:56
What food do you miss? Probably just

Steph 1:00:58
things like, I mean, not, we didn't have them often. But, you know, like, fish and chips, and English fish and chips, which is horrendous to deal with, like, a curry with, like, all the naan and the papadoms and everything, yeah? Like, there's no way I can eat all of that. Now it would. It's just not worth

Scott Benner 1:01:13
it. You could. You'd be fighting with it with a massive amount of insulin, yeah, yeah. So the fried food, no, and a lot of the bread. No, yeah,

Steph 1:01:22
okay, yeah, gotcha, but yeah. So I'm looking forward to meeting him and having him out, being able to not be as tightly controlled. And I'm pretty sure that first couple of weeks, I'm going to just let it be Well, that was

Scott Benner 1:01:37
my question. I'm always interested in what people do afterwards, because they I've had a lot of ladies tell me that, like that placenta gets delivered and your insulin needs just change and and so. And normally, very much they go down, yep. But then you're gonna you start breastfeeding and burning those calories and making the milk and everything. And now you could be fighting with lows. And then what they mostly, what I most remember from the conversations is people telling me that it's like, look, I paid such close attention to it for all this time, like, it's and now the baby's here. You're paying attention to the baby, and you're the easiest thing to give away. Oh, yeah, when you don't have time, you know, yep. So is that a concern for you? Or do you almost looking forward to it? Or how do you think about

Steph 1:02:19
it? No, it's, it's not a concern. I think I'll probably leave it be, not leave it be, obviously, I'm doing something, but I'll, I'll definitely not worry in the first couple of weeks, I think, I think I will eat a donut, maybe every day and and just be like, Yeah, sure. I'm sitting at 14. It's, it's fine for now, I think I've learned so much over this period of time that I don't really want to give it away. What's the point? You know, I thought I was pretty bold with insulin, relatively anyway, but I now see that I'm not. I could be a lot bolder. So, yeah, I think probably a couple of weeks I'll just not really give a crap, and then then get it back in line, back

Scott Benner 1:03:02
and you don't. I mean, listen, for my money, like I obviously don't know. I'm not a woman, and I have no idea what any of this is like, other than I've watched a one girl go through it twice, but I would hate for you to give it away when you're when you can do it, because it's going to be less intervention and less help. It's going to be less than it was while you were pregnant. You're doing it now. You'll be able to do it for yourself. And then you get to stay around for a long time and watch the baby grow up and stuff

Steph 1:03:26
like that. Yeah, exactly. And I get to keep my eyes and all the

Scott Benner 1:03:29
other good stuff. There's a, you know, it's funny, you and I are gonna say goodbye in a moment, but I have, like, a message in front of me that there's a Facebook post that I should go look at, and it's from one of the group experts. And he's, he's basically, he's going to tell the story in this long post about, you know, what his control was like prior to the podcast, finding the podcast, pulling himself together, and then, you know, which is great, because he's doing great now, but it was not in time for for his eyes. And so he's just gone through treatments. It's crazy. But for the last couple of weeks, he's been blind. The last couple of weeks, Oh, wow. So he, he had, you know, like, a catastrophic thing happened in his eyes that they're, I think, thankfully, able to help him with. And, you know, he's over, he's regaining a site. But for that time, like, it's, it was that bad, yeah, you know, so that's crazy, yeah. And it's a thing you don't talk about a lot, because I'm not, I'm not a real like, in favor of, like, scaring the hell out of people like to get them to take care of themselves, person, I think, generally speaking, that doesn't really work unless you're in the right head space for it, which is, you know, I don't know how to tell who's in what headspace when I'm talking into a microphone, but it isn't, it isn't, not to be brought up. You know,

Steph 1:04:45
no, no, for sure. It's, it's, it's like, that thing, you know, is there, but you don't necessarily talk about, yeah,

Scott Benner 1:04:53
yeah, no, exactly. But still, it's, you know, there are plenty of people also don't know. You. Know, yeah, yeah. Nobody ever tells them like they this could be the outcome of this, if you don't you know XYZ. So anyway, I appreciate this very much. Thank you for doing this with

Steph 1:05:10
me. No worries. Thank you very much.

Scott Benner 1:05:19
Us. Med, sponsored this episode of the juice box podcast. Check them out at us. Med.com/juice, box, or by calling 888-721-1514, get your free benefits check and get started today with us. Med, I'd like to thank the blood glucose meter that my daughter carries the contour next gen blood glucose meter. Learn more and get started today at contour next.com/juicebox and don't forget, you may be paying more through your insurance right now for the meter you have than you would pay for the contour next gen in cash. There are links in the show notes of the audio app you're listening in right now, and links at Juicebox podcast.com to contour and all of the sponsors I can't thank you enough for listening. Please make sure you're subscribed, you're following in your audio app. I'll be back tomorrow with another episode of The Juicebox Podcast. The Diabetes variable series from the Juicebox Podcast goes over all the little things that affect your diabetes that you might not think about, travel and exercise to hydration and even trampolines. Juicebox podcast.com go up in the menu and click on diabetes variables. Hey, what's up, everybody? If you've noticed that the podcast sounds better and you're thinking like, how does that happen? What you're hearing is Rob at wrong way, recording, doing his magic to these files. So if you want him to do his magic to you, wrong way, recording.com, you got a podcast. You want somebody to edit it. You want rob you.

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