#366 Kelly with a Y
Scott Benner
Kelly is a D-Mom of a three year old
Cory is a T1D mom and Justin is her grown son living with type 1 diabetes.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:02
Today's show is sponsored by touched by type one, and the Contour Next One blood glucose meter. Touched by type one is an organization that has programs and services for those living with the daily reality of type one diabetes. They offer a supportive community. And many, many interactive programs, and creative resources that are designed to empower people to thrive with type one. Check them out at touched by type one.org, you can take one simple step to upgrade your diabetes care, this is going to be incredibly easy for you to do go to Contour Next one.com Ford slash juice box to check out the Contour Next One blood glucose meter. This is the same meter that my daughter has been using for a while now. And it is absolutely the most accurate, easy to transport easy to use bright lighted good test strip blood glucose meter that I've ever held my hand Contour Next one.com forward slash juicebox. It's even possible that what you're paying for your meter and test strips right now through your insurance company so subsidized by your insurance company that could actually be more expensive than just the cash price of the Contour Next One blood glucose meter. And that in itself is worth checking into Contour Next one.com forward slash juice box. There are links to the advertisers right there in the show notes of your podcast player, or they're available at Juicebox podcast.com. But if you can just remember, Contour Next one.com forward slash juice box and touched by type one.org. Well, then you've got all you need.
Hello, everybody. Welcome to Episode 366 of the Juicebox Podcast. This episode is just incredibly conversational. And so it's hard for me to even pick out something to say Oh, it's about this because it's just a good conversation. There's a D mom named Kelly, and she has a child with Type One Diabetes. It's just a good conversation. And I think you're gonna really love it. So this is me and Kelly. Now my Kelly different Kelly. Kelly's gonna have a baby. At the time of this recording. She knew the sex of the baby but hadn't told her husband I think she tells me at the end, what kind of a baby it's gonna be you know, there's only two kinds, right? You could have like a boy baby or a girl baby, they come out either or usually. And she'll tell you which one. And that's pretty much it. We'll have a really nice conversation about living with Type One Diabetes. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan for becoming bold with insulin. There is still time to enter the big giveaway that is celebrating 2 million downloads of the Juicebox Podcast go to Juicebox Podcast calm at the top of the screen. I think something there says 2 million you click on that. It's easy to enter. There's nothing for you to do. And you can enter once a day through the entirety of August 2020. Check out the gifts that I've been able to pull together for this extravaganza and see if you don't want to throw in your you know your info there and try to win. I don't keep your email address from this. Nothing. There's nothing that comes to this for me, you just want to you is gonna win the prizes. That's it. I'm just trying to celebrate very happy you guys share the show. I mean, 2 million downloads is a heck of a lot of downloads for a type one diabetes podcast. So my respect, thank you very much. And hope you win. Good luck. All right, here's Kelly. I have to admit that I don't remember why we said you were going to be on the podcast. So this is perfect for me.
Kelly 3:55
Because honestly, neither do I. I think I just like I had started listening. And I was like, Oh, cool. You just talk to random people. Like I'm a random person. Let's do this.
Scott Benner 4:04
I'm a random person.
Kelly 4:05
Yeah, but really, my biggest thing is like my daughter was 22 months at diagnosis. So you know, I feel like we have that in common because obviously it was really little but I hear from a lot of people online. They're like, Oh my god, I don't know how parents of toddlers do it. It's like, well, you do. You don't have a choice. Yeah.
Scott Benner 4:22
Because there's no receipt that allows you to take a child back to the store.
Kelly 4:25
had a question? I know obviously, like, I'm not Kevin Sayer or like someone super important. So this isn't going up like tomorrow. But do you have any idea how long it'll be before it airs?
Scott Benner 4:36
Did you enjoy the one yesterday with Megan Did you hear that?
Kelly 4:39
I'm like halfway through it. I work from home all the time now. So I never have time to like drive anywhere and listen to it because I just listened to my car.
Scott Benner 4:47
I recorded that one in April.
Kelly 4:49
Okay, so it'll be a while. Well, and I only asked because I am six months pregnant right now and I know what we're having. My husband does not so I don't want him to like find out on your podcast but it sounds like all have had the baby before. This is great before anything happened by the way.
Scott Benner 5:07
This is great. Oh, that's wonderful. Yeah, I will not put it out before you have your baby. But I am trying to do fewer. My wife would be so proud of me just now that I didn't say less fewer recordings in the beginning of the the year right here, because I'm a little too far recorded ahead at this point. Like I have to admit when I put Baggins out yesterday, I thought it should not be nine months, like to get to get her recording out. So um, yeah, trying to use some
Kelly 5:34
things come up, though, like, you know, the Dexcom issue that happened over Thanksgiving. Like, that's kind of something you need to put out there. And
Scott Benner 5:43
thank you for understanding Kelly. I appreciate this. Yeah, totally. You're making me uncomfortable because women named Kelly are not that frequently nice to me.
Kelly 5:52
I'm sure she loves you. She stuck around.
Scott Benner 5:55
I mean, where's she gonna go? The kids look, or your podcast
Kelly 5:57
is finally making some money, right?
Scott Benner 6:00
She's like, No, I can't go now. The guy's finally bringing in a couple of bucks right now. So anyway, why don't we just do this? Everyone? This is Kelly. With Kelly's daughter, tell me your daughter's name.
Unknown Speaker 6:15
Alexis
Scott Benner 6:16
was diagnosed when she was 22 months old. How old? is she now?
Kelly 6:20
She turned three yesterday. Oh,
Scott Benner 6:23
so we're, um, a year? A little over a year? You're two months?
Kelly 6:27
Yeah, a year in two months. Exactly. And
Scott Benner 6:29
in the middle of figuring out diabetes. I'm starting to feel like you didn't get pregnant on purpose with this baby.
Kelly 6:37
Oddly enough, we were like about to start trying like the month that she was diagnosed. And then obviously stress just did its thing and kept that away. But yeah, we kind of got a better handle on things and figured Yeah, well keep going with this. Right. But this is the last baby we're gonna be having for sure.
Scott Benner 6:56
One that year. So you're six months pregnant. Now the one you're pregnant with right now is how many babies for you?
Kelly 7:01
It'll be baby two. And final?
Scott Benner 7:04
Yes. I feel like two is a nice number. Yes, it is. Really as as last night Arden was you know, doing her homework? And I'm like, Oh my gosh, if there was another kid still that was younger, like, what would we do? Yeah, you don't even like like, I'm right now looking at her at 930 at night thinking. Just go to bed. I don't care what grade you get. Please, I'm tired.
Kelly 7:28
Like, yeah, we're still a ways off from like dealing with school and stuff. But it is like it's kind of nerve wracking, like, purposefully bringing another child into the world after you already have a type one diagnosis. You know, like, I know a lot of people that have multiple children, but you know, one or even two or three of them are diagnosed like later, you've already got the kids, you know, but we're like, we had type one with our first kid. And now we're still consciously doing it again.
Scott Benner 7:57
Yeah, that's what I was gonna say Is that you? You may you you didn't get like I have six kids. And now one of them has diabetes. You're like, I'm gonna make another one on purpose now.
Kelly 8:06
Yeah. And hope he doesn't have type one. But you know, if it does, then we know what to do, I guess.
Scott Benner 8:13
Yeah, no, I hear you. I am. I wonder if now that we're done joking around about how many children? I wonder if I was the person I am today. If I was that person, 10 years ago, I wonder if we would have had a third child? Sometimes. So yeah, that person then couldn't have imagined being not completely dumbfounded. 24 hours a day by diabetes, you know? Oh, yeah. I just felt like I was gonna be like that forever.
Kelly 8:42
Yeah, I go see my ob. And she's like, Oh, where are you getting enough sleep? I'm like, Well, I have a three year old who's diabetic. So No, I don't. But thanks.
Scott Benner 8:50
And even if you just had a three year old, you probably wouldn't be.
Kelly 8:52
Right. Exactly.
Scott Benner 8:54
All right here. Okay. So listen, I just saw you put a photo of your daughter up in the Facebook group the other day, and she was just absolutely adorable. Was that for a birthday? Or who we
Kelly 9:08
thought was her third birthday yesterday?
Scott Benner 9:11
Oh, yesterday?
Unknown Speaker 9:13
Yeah. Very nice.
Scott Benner 9:16
might be the episode title. Happy birthday. How is it? Having a three year old with diabetes? What's her level of understanding of what's happening with her life? day to day?
Kelly 9:30
Um, I don't know. Like she doesn't know a difference because we've been at it a little over a year now. And this is just like, this is her but she she understands you know, when we say it's time for a sensor change for Dexcom or time for a site change for her pump. You know, she she has the anxiety around it because obviously I imagine the pump side change hurts. So she doesn't love it. But you know, she understands she knows when we tell her like Hey, you got to sit Still, so we can dose you. She'll stand still. So let us do her thing with her pump. And she doesn't, you know, she doesn't mess with it herself. We have the T slim, so we keep it in a little fanny pack. Yeah. So just sits on her back all day and night. And, you know, she just kind of leaves it alone. So
Scott Benner 10:17
she doesn't pull out it. I wonder if it's a boy or girl
Unknown Speaker 10:19
thing
Scott Benner 10:20
cuz I was just talking to somebody the days like my son won't leave stuff alone. It's like, I wonder if that's how bad I'm sure there's girls who don't like it either.
Kelly 10:29
Yeah, it's either that or just like, like I said, she was so little, like, we got Dexcom, about seven weeks after diagnosis. So she's actually had that just about a full year at this point. And I mean, at two years old, you don't know a difference. So I guess either. Yeah, the kids are gonna pull at it because like, this is not natural. Or it's just a part of them. Now. She just leaves it alone.
Scott Benner 10:52
Well, how did you figure out that, um, that she had diabetes? Did you figure it out? or was she diagnosed through now?
Kelly 11:01
Yeah, yeah. I mean, it was a totally typical Google symptoms of everything. You know, with the difference of a two year old is not going to tell you they feel dizzy, or they don't feel good or a stomach hurts or something. So, you know, it was probably it. Well, it was November 6, was when she was diagnosed. So we're like a week past Halloween. And of course, it was the first Halloween that she was like running around and actually trick or treating and getting the eat most of the candy and have fun with it and stuff. And I looking back on photos now I can tell she was super skinny. But you know, you don't see them losing weight right in front of your eyes when you see him every day. So she looking back. She definitely looks sick. But she seemed to feel fine. And I'm thinking cool. I got the only two year old in the world who's like, eating anything and everything we put in front of her like we're doing something right. But no, she was just starving. So yeah, she was eating a lot. The biggest thing was like she would pee through her diapers like, even the overnight ones that are meant fairly crazy thickness and stuff like nothing was stopping that She'd wake up in the middle of a two hour nap or the middle of the night and just yell for water. Which you know, we live in Arizona, it's hot here. I figure Okay, like she just is thirsty. And I didn't know anything about it. So I didn't even think to Google the symptoms. I took her pediatrician at one point thinking it was a UTI. And the nurse practitioner who I don't see anymore, had asked briefly, does diabetes run in your family? Nothing else around that? And I'm like, No, that's a weird question. And that was it like no finger poke no further why she was asking that just that was it. And they gave her some, I think an antibiotic or something saying Well, I don't think it's a UTI. But if it is, so clear it up. And a week later, she's doing the heavy breathing like super lethargic, just not wanting to get out of bed, didn't eat anything that day. took her to the babysitter anyways, because of course we all had to go to work. And then by like five o'clock that night, I'm taking her to urgent care because something weird going on. And yeah, I mean, after 10 minutes in urgent care, the doctor is like, Okay, well, we're gonna, we're gonna do all these tests to rule different things out. And of course, she starts with a heel stick, because I think she knew and just didn't want to freak me out. But get that number back was like 480 something which I'm like, cool, high score. I don't know what that means.
Scott Benner 13:40
Finally, and she's like,
Kelly 13:42
yeah, she's like, well, it really shouldn't be over like 150 considering she hasn't eaten anything all day, like, Oh, okay. So after a couple of minutes of crying in the doctor's office at urgent care, she's like, okay, now you need to pull it together and you need to take her straight to the Children's Hospital. Don't stop for anything, just go like, we'll call ahead and let them know. And so yeah, we took her in and two days in the PICU and two days on the general floor, we're set home with our new life.
Scott Benner 14:12
Hey, listen, I'm just realizing something. Do you spell your name one way and pronounce it a different way? No, no. Do you know your Facebook say fit page says pronounces name. Ke Li.
Kelly 14:26
Oh, really? Yeah, I had no idea.
Scott Benner 14:28
That's weird. Okay, fix that. We'll do that. I'm like, I'm like here's what I was thinking when it popped up in front of me. You're finishing up your story. And I'm just checking because your kid really is adorable. So I'm going to look at a picture like this right while you're talking and and I'm looking over to says pronounce his name Keeley. And I was like, am I talking to a lunatic who spells their name Kelly and says Keeley and I should know that if I am absolutely
Kelly 14:53
Kelly. Yeah, that's how your wife spells it too. Right Kate? yelloweye
Scott Benner 14:57
Yeah, I believe there's like two ways to Well, Kelly Yeah, there's
Kelly 15:01
Oh, there's multiples fully. Here's
Scott Benner 15:04
why. And I and I is crazy. All right.
Kelly 15:07
Yeah, I can just I too, which is kind of cool. Oh,
Scott Benner 15:10
my gosh, yeah, Bedlam. But yes, but Okay, so I just want to make sure you went nuts. And now that I more comfortable that you're not. I want to know a little more about your experience being diagnosed because, and this is tough, because, you know, I think at this point, the podcast is well listened to enough around the country, and other places where if you say something off color about your children's hospital, they might hear. So right. I don't want you to do that. But I've been to Arizona to talk. Right. And I know the difference between people complaining to complain, like, you know, jumping on the internet to say something they don't like, because they want to get it out, or saying something when you bump into something and hearing very similar stories over and over again, that seemed like they have more than a grain of truth to them. Is there an issue with how you guys are? assisted? Like, what? Or did you feel good about? What you got from the hospital when you were leaving? And how has it proven out over the last year?
Kelly 16:20
Um, it's weird, I guess, because I mean, I, we really only have two children's hospitals here. So you're going to one or the other. Most of the time you start by whatever is closest to you. And then you continue with, obviously what insurance covers. So it's not like we've had the opportunity to like, go to different doctors or anything, but we love ours, like we met him through and I believe you know, him, he was on the panel with you. But we, we went to, to the local Children's Hospital. And I mean, they were great. Like we walked in, and I say I don't think they call the head because she gave me a paper like, you know, you leave with the discharge paper from urgent care. And it said, possible DK on it, which I, I don't know how I had the willpower, but I did not Google that on the way to the hospital. Like and thank God I do. It is terrifying. But we walked in and you know, we wait behind two or three other people who are there with their kid, you know, with the flu or something. It's November, so flu season. And I walked to the front and we go to register. And she's like, Well, you know, what are we doing for you? Like, oh, Urgent Care said to say possible DK and like, I swear, five nurses heads just whipped around. They're like, How old is she? And I said, almost two, and they're like, Oh, my God, that's too young. And I have never seen them move so fast. Like, we cut every line, they they moved really quickly. So the hospital itself did a phenomenal job. And you know, explaining things as you go. And then we didn't actually meet the endo until the next day, because by the time we got to room, it's like two o'clock in the morning. And so we met everyone, and you know, they're all great. And they really do explain things as best as they can. And it's kind of frustrating now, because looking back a year later, you're like, Well, why don't they tell you this? And it would make so much more sense if they explained it this way. But it's like you've said before, like they're giving you don't die rules. They can't explain the ins and outs of this. And I think one of the nurses we talked to actually set it really well is that there is there's so much of it. That's an art. Like it's not just a science, which really drove my husband crazy at first because he's like, Well, no, it is a science like this is your blood sugar. This is how it gets there. But now we realize like that's not true. Yes, there's a science to it. But so much of it is your diabetes may vary. Like you have to learn what works for your kid. And, you know, just after listening to the podcast for a year and talking to people and being around others, we've learned, you know, oh, yeah, elevation makes our kid drop some people that makes them go high. Those are just things that the hospital can't tell you because they don't know.
Scott Benner 19:08
Yeah, so this week, this past weekend, I spoke at a hospital around here in a lovely group of people. And it's the second time I've been asked to talk to them. So I felt this, I felt a little bit of pressure. Like I'm like I'm back, there's gonna be some doubling of people. And actually, it was nice here, probably about 50 people there. And, you know, there was only maybe eight or 10 who had been there the year before. So it wasn't you know, it wasn't like I was saying the same thing twice. And anyone who knows me would know that I don't actually have the ability to repeat something. So not that well thought out. I and so I you know, I go in and do my thing. We started a Gosh, like three o'clock maybe. And I walked out and got in my car at 620. So I'd spoken for three solid hours and after As I was leaving, I thought, Oh, I should have said this, you know, and I really should have made this point a little, like stronger. And and I just as I was walking out of the building, I kept thinking of things like, Oh, I wish I would have been more clear about this or made this point better, or something, or I hope they understand this. Because the truth is, I could have probably talked for another three hours. And now everything that you know, in my heart, I would want them to know, as they were leaving. So I don't even know how a doctor in anyone in 15 minutes would really put you on the path. I mean, without the because they're trained the way they're trained. And they come into practice. And this is their life, they see you 1520 minutes move on. Yes, some people get a little more my doctors not as pushy, like you'll sometimes just spend a half an hour in there. And that's even dumb luck, you know, that if you get if you're at a place that can go that long. And I think that I think that if they had the opportunity to speak long form over and over again, like the podcast is, then they'd be able to keep boiling down the things. That's why I feel like the podcast is valuable, because there's sort of these big ideas smashed down into a couple of words. And if you listen long enough, those words, they paint a larger picture in your head when you think of them, right. Like, you know, I was saying to the people the other day, I'm like, at some point, the words like trust that what you know is going to happen will happen. It's going to mean so much to you. Yeah, but in this moment, as I say to you, you're just like, wait, that's like, sideways talk, there was this one, this delightful. I every time I say this phrase, in public, I think someone's gonna laugh, and no one ever does. And this past weekend, a woman cracked up and she made me laugh. Because I'll tell people, as I'm beginning to talk about pumping and nudging and not letting blood sugars kind of get out of line too much. I say, listen, the truth is, if you don't get high, you won't get high. And which doesn't make any sense. You know, at first, that's a way to like, pull people's thoughts together, make sure everybody's focusing and then I started talking about not letting blood sugars, you know, like, don't let them run, you know what I mean? Keep them on a leash, stop them before they get started, whatever you want to think about. But she broke down laughing and I was like, I walked all the way out into the crowd door. And I was like, I've been waiting years for someone to point out how ridiculous that is. Thank
Unknown Speaker 22:23
you.
Scott Benner 22:26
But she's like, what does that mean? It doesn't mean anything. I was like, Oh, well, in a minute, let me tell a story, you know, and then I sort of build a narrative around it. And then kind of brought it back to the idea again, but that's just, it's very difficult to do, you know, in a quick setting. But you feel good about it. Your you like what, what the hospital has been teaching you at the pace they've been teaching you? Are you able to like, see, like, what the division of labor is, like, How much have you gone out and learned on your own and brought back to the process? What do you think the split is?
Kelly 22:59
Oh, like most of it? We like, I mean, like I said, They taught us to don't die rules, we go home. You know, we're MDI, initially, they did actually bring up the dexcom g six, when we were in the hospital. So the nurse practitioner who is actually who we see more often we only see the end, like once a year. And she had brought it up and was like, you know, here's some information about it, look into it, see if your insurance covers it, like this is going to be amazing, especially for a kid this young. You know, you just you need to know what's happening. And I literally refuse to go back to work after her diagnosis until we had Dexcom. Like, I was not comfortable leaving her alone. I wanted to know what was going on at all times. Like I I just couldn't do it. So we I think about seven weeks later is when we got it. And we had some actual issues initially, too, because our insurance was hesitant to get us on the Dexcom. Because Dexcom specifically is like FDA approved for two years and up and she wasn't to yet. like are you kidding me? We are seven weeks away from her birthday. Like let's just do this. This is clearly a medical need. But eventually they come through and she turns to when we get it pretty quickly after that. So that part was good. I mean, I don't feel like we would have known about it otherwise, because we didn't start getting involved in like the internet community for a little while after that. I mean, we actually we joined some local type one parents groups, while we were in the hospital, you know, there's always a case of Oh, someone knows someone and then gets you involved in the group. So that happened before we even went home. But other than that, that was just kind of like the overwhelmingness of everyone, you know, reaching out and oh, here's the hugs and prayers and you know if you have any questions, whatever. But yeah, the hospitals been great. I mean, we we actually had a hospital stay shortly after that, like, right After we got the ducks calm, she ended up with the flu and strep throat in the same week. And I just especially being MDI to later, I can only give this 25 pound kid, half a unit, which is going to drop her like crazy. She's not eating anything because she feels like crap. So, you know, what am I going to do? So we ended up in the hospital, that was actually a longer hospital stay to get over the viruses than the initial diagnosis. So in two months, we spent almost two weeks in the hospital, which was super fun. But after that, I mean, knock on wood. We've been good the last year, you know, we've been managing other sicknesses and stuff. But obviously the pump makes that a lot easier to when you can do these micro doses and stuff.
Scott Benner 25:45
This weekend after the talk, and she was standing there with her daughter, and saying, like, Oh, this really made me feel more comfortable. I appreciate it. And I have been wondering, and she started talking about, you know, the her child was on a pump, but not a glucose monitor. And they're trying to get one of their insurance companies messing around with him, said the kids agency was too good. But then you look at the kids numbers, the kids they want sees lower because she's having these crazy lows. You know, like, you know, you know, the insurance company knows that they're just I said, Look, they're just putting you off, you got to keep going back and like the you know, the CD will be able to help you get a letter to explain everything, you'll be able to get through it and get a glucose monitor, but she was talking about it. And while it took me right back to an Arden was younger, like the idea of like, you know, I put her to a bed and I tested her and she was okay. And then I, you know, I wake myself up a couple times at night that has then it just this last feeling that you don't really know what's happening.
Kelly 26:42
Yeah, you think you're rocking it and find out? Not
Unknown Speaker 26:45
so much you're not? Yeah,
Scott Benner 26:46
well, you're having these outcomes. That are the ghosts, right? They don't they're not really true. Yeah, it's a way I talked about setting baselines on a lot. I tell people look, until you get your bazel. Right. Nothing else you're seeing is real. Yeah, you know, like, you don't really know what your Pre-Bolus time is, you don't really know if your insulin to carb ratio is right, or your action time is set up correctly, all these other things that you really need to understand about how the insulin works. Because if the bazel is too strong, you may be bolusing. You know, your ratio might be often below but it won't matter because you've got way too much. bazel. And, you know, these just these ghosts, you have to first the baseline has to get set before you know what you're seeing. And she she's like, she said, I don't know what to think like, I test her and I see a number and I don't know what that means. You know, like, like, it seems okay for the moment. But what does it mean after that? And yeah, I was like, Yeah, I don't know. But you just took me into a, she put me right into a time machine and took me back to a time where I felt absolutely freaked out most of my life. You know what I mean? So
Kelly 27:54
Oh, yeah. Yeah, I can't imagine like, some of you do parents with the older kids who did it, you know, with a toddler without having a dance calm or something like that, like that is terrifying. You just didn't sleep the first like five years of her life,
Scott Benner 28:09
sleeping, and then it was all just sort of like, I put the insulin in here. We'll wait this amount of time we'll check again. Normally, she was too high, then yeah, frozen in fear, because you kept thinking like, well should probably come back down. I did what the doctor told me. And then you test again, she was and then you realize you had to give her insulin, and now all of a sudden, you are actually stalking insulin. Because Yeah, I didn't know what the hell you're talking about, you know, and it's just a very, it's a very blind way to do it. And it's not not doable. Like, don't get me wrong about that, like you could, you know, when I said to her, I was like, Well, you know, the thing you can do in the meantime, is just test like a lunatic. To give yourself sort of this, like, our to our CGM graph, just I said, test every hour, and make a.on a graph. And then, you know, you can just sort of imagine where you were in between, if you're at five at 7am. And you're 110 at, you know, at 8am. I don't think you went to 150 and came back to 110. Like, there's probably somewhere in there is the path your blood sugar took take, you can cheat and give yourself a little bit of an idea. And she's like, maybe I'll try that. And I was like, that's a good idea. I'm like, I might say that on a podcast. And then I just stuck it in here. So I'm just like, here. I wonder how can you tell a story that will put this
Kelly 29:31
stick? No, that's fine. Yeah. Yeah, I mean, are we we're doing the whole you know, talking to the CDs daily, emailing the blood sugars, daily, all of that and then just like literally, I got the Dexcom and very shortly after that, like probably within the same month, is when we started listening to your podcast because we we started listening to it in January, so about two months in we had just gotten ducks calm. And then I think you were here for the the type one nation summit. In February, and like, honestly, you're the reason we went like cuz I'm like, Oh, hey, that's that guy listen to on the podcast, we should go got my husband to listen to a couple episodes. And oddly and like he actually grasp everything so much faster than I did. Like he's just a very analytical person and everything that you said made sense. Whereas I was like, Well, yeah, but the doctor said this and he's like, but it's not working. So
Scott Benner 30:25
anytime you just walk past it every setback?
Kelly 30:27
Yeah. And I think it is, like you've said before, I think people just we grew up our whole lives myths, oh, well follow the doctor's orders. But this is not a disease that can be managed only by following doctor's orders. Like, obviously, they have your best interest at heart. But at the end of the day, yeah, you're seeing maybe an hour every year, like, they're not living with you. So and our CDs were great. And our nurse practitioner, the endo, they're amazing. Like, they let us do our thing. They basically told us from our very first visit, we dropped her a one c like significantly from diagnosis to the first three month appointment. They're like, Wow, you guys really seem to have a handle on this. And we did tell them about the podcast and like, yeah, this is how it's kind of presented. And it makes sense. They're like, well, cool, keep doing what you're doing. If you have questions, you know, reach out to even now, you know, we had an endo appointment in November and Godrej, one c back and it had gone up a little from where it was, but still in a good range. And she's like, yeah, you know, maybe these are some of the changes I'd make. These are the most recent graphs I'm seeing on the pump that's, you know, showing something off. We'll try this. And then she's like, hey, fee was just just approved for pump use, you know, is that something you guys would be interested in? Like, yeah, sure, we'll be the guinea pigs. So, you know, they've used it with other pediatrics, but not someone as young as her. And they're just like, well, you guys have a good grasp on it. So if you want to try it, you know, I trust that you guys, you know, know what you're doing, and we'll stop it if need be, and go back to him a log or whatever. So that's working out, you know, it's just, the whole thing is, it's a lot. But once you kind of know what you're doing, which is weird to say, because people ask like, Oh, you know, how's that diabetes thing going? You have it under control? No. Yeah. Like, there is no control. But she is alive and well. And we're not pulling our hair out every day. So some days are better than others.
Scott Benner 32:24
Isn't it like you lost your dog? They're like, Kelly, do you find your dog? Like, yeah, we found it. Great. Oh, that's great. And that's the end of the day want there to be a finite answer to what you're saying?
Kelly 32:33
Exactly. Like, no, this is something I'm going to stress about every day of my life, but it is what it is. You move on. You won't though.
Scott Benner 32:40
I know it feels like that now, but you really want
Kelly 32:43
it. Yeah, I'm just terrified for the, the puberty years. Because that's the only thing that I see online that people are like, Oh, the only thing worse than dealing with a toddler with type one is dealing with a hormonal teenager.
Scott Benner 32:57
Let me see if this makes you feel better. Okay, so I'm just jumping back here to 3am. So it is noon here right now. Arden's blood sugar 3am was 110. At 4am, it was at nine, at 5am. It was 79 6am. It was 70 7am. It was 76 and 71. And at 930 9710 4184. And it's 91. Right now, so and Arden. I look, I know, one day, she's gonna like I'll be dead, right? But she'll go back and listen to this podcast. She's gonna be like, you know, I think the thing my father talked about the most on that podcast was my period. And right now Arden has her period. So it's not not doable. You know, I mean, it just really is an abstract idea. With a concrete answer, which is, your body has a need, you fill the need, you know, it needs a certain amount of insulin you put that insulin in,
Kelly 34:12
and not being afraid of doing it, like you know, it needs to be done. So just pull the trigger and do it. The other day, we had a site issue, which we rarely get with the sites that we use, because it's one of those like the 90 degree metal ones, like it looks like a thumbtack, but they really don't have sight issues because there is no canula or anything like that. But I think it was a case of like the the adhesive had kind of pulled up a little and I just don't think the needle was in far enough. And she's going up going up. She had eaten so I'm like, Okay, this is kind of a strange high, but whatever. She has high on Dexcom and I'm like, Oh my god, what is going on? And I told my husband, he's like, well pull the site give her an injection. But I had just pushed like two units into her pump. Like Well, I don't Know how much of that she got like, I'm scared to give her another whole unit via injection. And he's like, so what do it and we'll have a juice box like, we need to do this
Unknown Speaker 35:08
oh and turn up. That's Yeah, no, he's
Kelly 35:11
he is great at doing this stuff and he just like you know it needs to get done so we give her the injection, which she hates. I mean we come at her with a syringe now and she's been on the pump so long. She's like, get that thing away from me. But you know, she gets the shot and within 10 minutes, she's backed down, you know, 380 200 like we were having 60 point drops in five minutes. I'm like, Oh, crap, maybe we should get some juice go in now. And yeah, we actually we nailed a she had like half a juice box, and I think a couple pieces of fruit snacks or something. And like she rounded out at 97 within 30 minutes, like it was insane how quickly it worked.
Scott Benner 35:48
So by the way, Arden just texted me and she's like, it's lunchtime, and I said, Are you hungry? And she said, not really. My stomach hurts. And I said, Oh, wow. I said, Okay, well, let's so I'm thinking about our launch, right? There's stuff in there. She's not going to eat if she's not feeling well. But there's two chocolate chip cookies in there. And there's a bagel and popcorn and all the carbs. grapes and cherries today. I tasted the other day. I was like mom bought you cherries out of season. I don't love you enough for that. They're very expensive out of season. Seriously. Yeah, I was like she obviously either a does not care about our money or be really loves you more than I do. Because I would not have done that. And, and so I'm joking with her. She's gotten that. So what I just told her was, look, let's just do 40 carbs for now. Right? Because there's
Unknown Speaker 36:46
chumps, sorry. I'm laughing at what she said.
Scott Benner 36:50
She came from gym and she's like, I just did yoga. And that did not help out my stomach.
Unknown Speaker 36:56
Oh, yeah.
Scott Benner 36:58
So So I said, like, Look, let's just do there's probably 80 or carbs in that launch. Now my expectation, by the way, said she'll never eat the whole thing. Like Arden's not a lunch finisher, completely. Like I sent her way more food, people are probably like, wow, that kid eats all that food. I send her more food that she's going to eat. I don't expect her to eat the entire half of the bagel. I don't expect all of the grapes like you know, I just I have this mount of insulin in my head that she generally needs.
Kelly 37:26
Yeah, and she has options too.
Scott Benner 37:28
Yeah, right, right. And then she can kind of eat what she wants, and it's not too bad. So basically, we're gonna just cover 40 carbs, which in my mind, is the two chocolate chip cookies, some of the grapes, a couple of the cherries, and maybe a bite or two of the bagel. And then so I just said to her, I'm like, Look, just, you know, let's do 40 carbs right now. And then send me a text and tell me what you eat. And if it ends up being more, we'll do more. And if she gets a little high over that, whatever, you know, it's you know, they're trying to stay fluid with it and everything like that, but I'm not gonna roll through and be like, do 80 carbs. And you know, and then have her come back and say, I didn't eat anything. Plus, I know. Yeah, you know, plus yesterday. I remember what I took out of her lunch bag at the end of the day that she didn't eat. So kind of doing the math on that in my head. And this seems like a nice centerpiece. Plus, you might start eating and feel better. PS now on looking. It says that the yoga was painful for everyone, not just her. So this might not be about her period. This might be about a bunch of out of shape girls, who just did downward dog for the first time. A bunch of Netflix girls, that's that's, that's what they are. But anyway, yeah, that's how we're gonna do this. And she'll you know, she'll text me a little while and say, I didn't need as much for this is what I ate. And we'll just adjust off of that.
Unknown Speaker 38:47
Yeah.
Scott Benner 38:48
But with a little kid, it is a little different, isn't it? You know? Yeah. How is she with eating? This is Alexis finisher you give her?
Kelly 38:56
Um, no. I mean, sometimes it depends, like we've gotten a lot better about not letting her snack as much so that when it is mealtime, she's actually hungry enough to eat it. And that's made dosing a lot easier. Because I mean, the hardest part is just when they're constantly grazing. And I'm like, I can't do that I can't have you do what some of your friends are doing. And just have, you know, goldfish crackers here, and then a cookie here. And then Oh, you want milk and all this and that. And that's what most three year olds do. And it's hard because you want her to be normal. But I also need some consistency too. So she's, she's good with food most of the time. You know, she says she wants something. I'll Pre-Bolus for it. But we're not doing like a 20 or 30 minute Pre-Bolus either, like, we'll basically dose for it, give it to her she eats, but then she'll take you know, 30 minutes to eat a fig bar or something anyways, and it's something that's going to take a few minutes to hit her so she's still kind of getting that same Pre-Bolus and that's what fiasco has actually been really good. For is it doesn't seem to need quite as much of a Pre-Bolus to start working. So that's been helpful. But I have noticed and I've seen other parents say this online too, is that once you get to a higher point, though, it takes more to bring you down. So it's almost like the insulin resistance hits harder. But like you said, if you can avoid getting high in the first place, then it's better. So you know, we have some really good days where I'll look back at the 12 hour graph and be like, Wow, did she even eat today, cuz that's like a really straight line. And then other days, I'm like, Oh, she's just up and down, up and down. But her ups are still she might hit 180, and come right back down. But at that, it's like, well, I can't just keep pushing insulin in either, because then I'm just gonna be chasing it with a juice box. And then she's gonna constantly be on the roller coaster. So yeah, some of it is hard, because you have to have the patience to wait and see what's going to happen. But a lot of it is, yeah, you know, either we miss time did or didn't give her enough to begin with, which is mostly because we don't know exactly what she's gonna eat.
Scott Benner 41:03
Okay, I have two questions based off of what you just said. My first one is about grazing, like, what do you just want you to kind of put into like more specific language, what you find difficult about the grazing, eating.
Kelly 41:16
Um, just because when she does graze, it's usually higher carb things, you know, the goldfish and animal crackers and things like that, that aren't necessarily gonna hit right away. And we with having the T slim, we do the basal IQ. Like, that's literally the whole reason we went with that pump, okay, and it's fantastic. Most of the time, but it is hard, especially like with things like pizza, I just listened to one of the episodes you did with Jenny, where she was talking about how she bonuses for pizza. like, Well, that sounds fantastic. If only it worked that way for us, because it we literally cannot doser for pizza, she will eat it. She loves pizza. That's her favorite food, which of course God helped me with that, because it's, it's a nightmare. But she will eat a piece of pizza. And we found the typical kind of version of 30 grams for a slice actually works really well for us. But we cannot doser for it for about two hours. Because even doing a Temp Basal on it or something or an extended bowl is actually the beginning. It's too much. And then it ends up shutting off when bays like he sees she's going down, they'll shut off. And then of course, one of us will forget to turn it back on and doser and then she had the pie for hours. And it's just constantly pushing to get her down. Yeah, so we found it's easier if that's all she's eating. So usually, if we give her pizza, we try to give her either like a sugar free juice, or water or something like that, that's not gonna immediately affect her. We'll give her a piece of pizza. And then we just will all set an alarm on my phone for an hour later. And I'll check Dexcom and be like, Okay, how she started trending up yet. And if she has, then I'll put in and do the extended Bolus. So if we do it too soon, it just shuts off. And then we're screwed the rest of the day. But usually it's been working out better to do it that way. But that's kind of the same thing with grazing as if she's eating these carb heavy snacks. Then it's like well, do we just do a Temp Basal to kind of blanket cover all of it right now. And sometimes that does work. But she's eating something that may not hit her for an hour, then same issue, the Temp Basal is going to bring her down, it's going to turn off, we're going to have to give her a juice box to bring her back up just in time for those heavy carbs to hit her. And then we're dealing with highs again.
Scott Benner 43:35
Okay, can you so try to think of when this is gonna air? I'm getting good at looping.
Unknown Speaker 43:45
Yeah.
Scott Benner 43:47
So there's, there's ways to trick it. And, you know, into. I saw somebody wrote an article recently, and they said, you know, these algorithms are best if you leave them alone, let them do their thing.
Kelly 44:01
But I don't have your like, Yeah, right. Like, I don't agree
Scott Benner 44:03
with that completely. You know, like, I get what they're saying. But there's also a way to jump in and out of it out of the algorithm. Without it messing things up. In the future, you just sort of have like thoughtful about a little bit. And I find that if the algorithm lets her get past like 150 then I have to, I have to shut the algorithm off. And then and then I, I come in and I handle it the way I would handle it without without that, you know, I'm aggressive with it. And I and I push it back down very quickly again. And then as she gets to about 141 30 diagonal down situation. I let the algorithm take back over again, because there's I have so much. The idea is that I have so much insulin going in that moment. That when the algorithm tries to take away the bazel for the next hour It won't matter, like, so I've got my 140 diagonal down, which I want to be at again, it's gonna see the 140, diagonal down and be like, take all the bazel. And I'm like, I tricked you, I already have insulin in there to cover that bazel. So I'm learning how to like stop an arrow up by shutting the algorithm off. I'm also learning how to stop them from happening ever by balancing absorption times with carb. And that's what I want to ask you about the baseline Q, does it do that? Can you tell it? I don't know, this is a meal that has 50 carbs in it. But I believe that 20 of these carbs are going to impact greatly over the first two hours, I think 20 of these carbs are really impact over three hours. And I think 10 of them are going to impact over four hours, can you split them the dose up like that, when you tell it or does it not?
Kelly 45:46
Not really, I mean, you basically have to do it in your head and then tell the pump what to do. So I mean, we'll we'll kind of do that on our own anyways, she likes these, like for her breakfast, nine times out of 10, she wakes up and says chocolate milk and bar, which is like these chocolate protein shakes from Costco that she's obsessed with. Those will raise her immediately. And then she likes these like Fig Newton bars. And she'll eat one of those and combined, it's like 38 carbs. So we'll put that in. But I'll usually do an extended on that because I know the chocolate milks gonna hit her right away. And she drinks that real quick, like within five or 10 minutes. But the bar she kind of takes her time eating and it takes a while to hitter. So I can usually do like, Okay, well, we'll say 50% up front, because they're both roughly 20 carbs. So 50% up front for the chocolate milk, finish that and then the other 50% over an hour. And then if you know she starts going up faster than I anticipated, or whatever, we'll throw on either Temp Basal, or just stop it altogether and just give her the rest of the Bolus. And that seems to work pretty well to it. Just some of those things, you know, she we're used to dealing with on the daily and she usually wakes up in a good range, like our overnights are pretty fantastic. So that's why I feel like her bezels right. It's just as soon as she eats something that screws it up, because I never know, is she gonna drink all this issue not. So that's why I started doing the D extended on some of those meals too is it's just easier, at least then we can take it away if she doesn't actually eat it. Right.
Scott Benner 47:23
And we talked about this this weekend, too. And I said, that's one option, what you just said, you know, create an extended Bolus and take some Yeah, don't finish it. I also am a fan of for small kids Pre-Bolus thing an amount that you can be certain they're going to eat even if it's only a few carbs. And then maybe it's thinks a little bit but while they're eating, maybe you make two or three small boluses. Throughout the food. We're like alright, 10 more carbs. Definitely just when it Yeah, and you know, like that kind of thing. And that way you get enough of a Pre-Bolus to stop a spike. And hopefully you can get the rest of it in there and get it active before the food has a chance to take over too much.
Kelly 47:59
Yeah, and that is a lot easier when you're on a pump because you don't feel like Oh crap, I have to give them another shot for this. Like when we were MDI and we started listening the podcast, before we had the pump. It was ridiculous, because she was getting probably 12 to 15 shots a day
Scott Benner 48:14
for a two year old. But it was working right?
Kelly 48:17
Yeah, yeah, I mean, still not as well as it is now obviously, because again, the best we could do was half a unit. So you know, we give her half a unit, but then we'd have to give her juice because we know that's going to bring her to low. But also our idea of highs and lows have changed in the last year as well. I mean, we did your trick was like oh, lower your alarm. So you react sooner and all that. So right now, my alarm, like overnight for her is set at 65 because she doesn't ever just drop at night, if anything, it's a slow decline. So she'll hit 65, I'll wake up when sugar make calls me and then go up, give her a sip or two of juice, and she'll coast and write it out the rest of night, which is perfect. Okay. But then during the day, I have it at 70. Because if she's falling, which is something you should bring up to Dexcom. And I know other people have said this with the follow app, it would be amazing if we have the same notification of the double arrow down and the double arrow up. Because I don't get a notification until she's at whatever arbitrary number I've put in there. But if she's falling, even if she's at 200, I still want to know if she's falling real fast. Because can we catch it? Maybe before it hits a low? Yeah, and you know, that would be great. I mean, it works if we're home with her because we just hear it on her phone anyway, and can do something about it. But if she's with a babysitter or something, it's you know, hopefully she catches it and does something with it, too. But yeah, I mean, during the day, we've now got our high alarm set at 150 because we found if we she hits 150 and same thing, she's just kind of cruising there. I'll just do a Temp Basal to slowly bring it down. But if she's cruising closer to 200, I'm just going to jump ahead call it 200 do a correction and bring her back down. Because we obviously Miss timed or miscalculated something at that point. And then she's good. But we before, I mean, we were having a high alarm set at 300. Because we basically had to have read 300 before we gave her even half a unit for a correction, or just drop her to heart.
Scott Benner 50:23
That's all gonna get more. She gets bigger. She gets bigger. Yeah, yeah, you got to just fatten her up and get her to go. Look, can you get taller and gain weight, please?
Kelly 50:33
Yeah, I mean, she's like 40 pounds now just about and it's already getting easier to do that too. But again, the pump is just so much easier with that, because you can manipulate the bazel to do what you need it to do. So I do a lot of temp bagels, just to help kind of round it out. Because I do feel like that gives it a better rolling graph, as opposed to just the crazy spikes and stuff, the ups and downs. But then I think you've seen both my husband and I and now my mom has all worn a duck scout for 10 days. And so that brings so much more clarity and understanding to the parent. I think it should honestly be required that every parent were a CGM. Tell me what, you just have no idea. Like, I'm sure everybody has tested their blood sugar before and you're like, Oh, cool. 95 110 whatever. Like, that static number doesn't tell you anything, you know. So when we wore it, it was great, because I actually found my numbers tend to be a little higher than my husband's. So I'm probably on the way to prediabetes at some point in the next 1015 years. But it just, you know, it shows you I think I had a bowl of cereal at one point, like Cheerios, it wasn't even anything crazy. And my blood sugar rose like 165 and sat there for four hours. And I'm just watching my Dexcom. And I'm like, I would have dosed her for this two hours ago. Can I get some insulin here? What is happening? Well, but you just realize now some of those highs, you're not always going to avoid like it's natural to have that happen. Whereas I think people people look at a 65 blood sugar and they freak out. Oh my god, she's so low. She's not my husband wrote at 65 all night long one night, and that he didn't feel any different. He went to bed had a great night's sleep woke up and was fine. Like that's just his normal. So
Scott Benner 52:26
a couple things. First of all, there are plenty of people right now who know this that are just like, I hope he tells her Cheerios, even though they don't look all sugary. And they're not they don't have a picture of like a chocolate count on the front of them. They hit really hard. Oh yeah, Cheerios
Kelly 52:40
are tough. Cereal does. Yeah.
Scott Benner 52:44
But seriously, like there be in your mind, there'd be a way to think well, they're not frosted, or they don't have Yeah, but Cheerios are healthy. Yeah, they're healthy. They still hit your blood sugar hard. The other the other idea is, is about the, you know, your, your husband with the 65. I mean, I'm not a doctor, right. But I, I can agree with you. You know, like I saw today where or I put a new graph up in my talk. And I was I was showing people kind of like, what, what it looks like when things go wrong, and how I so that is the the crux of this one slide is listen, everything's not always going to go okay. But here's how I maintained my concepts throughout like, you know, so we got a, got a meal started without a good Pre-Bolus she got high, we corrected, the correction was just way too much. And here's how I shut bazel off and added juice. But as you can see, she got down lower than I wanted. And you can see on this graph, you can see she hits 65. And she stays there for 15 or 20 minutes until she kind of rises back up. My point in that part of the graph is so look, you see here, I'm not panicking, I've got the food and I've taken the bazel away I trusting the what's about to happen is gonna happen. You know, I'm not overloading or with carbs. But as I look out into the group, they're all they can see is the red, where the dots Yeah, they're just like, it's red. It's red. You know, my cat, but she's just it's 65 Plus, she's got the food. I think if I would have finger stuck or there, she probably would have been a couple points higher anyway. I mean, and yeah, think of how ridiculous that is. If she was 70 it wouldn't have been red. And they would have been completely comfortable with that.
Kelly 54:28
Yeah, you know, to me, it really is a visual thing. Yeah. And I mean, again, like keeping steady at 65 is very different than two arrows down at 65. I think we got two arrows down at 120 and we're like crap we messed up like where's the juice? Where's the candy something Yeah. And we'll get it back up. But yeah, to be steady at 6570 like that's a perfect night and that's where you're going to get the good a one sees. Unless of a rollercoaster I feel like the next day even I think if we can have a steady night. It helps lead in Have a better day. Yeah, it seems the days that are crazy are the ones where we had crazy highs overnight because she had like pizza late at night or something, or caffeine or something. And then yeah, the whole next day is just screwed up too. Well, to finish that idea, the rest of that graph is to show them like, Look, now we got through this. Now it's lunchtime.
Scott Benner 55:19
Yeah, not only did I still do exactly what I normally would have done with that meal, but I added some bazel. And they said why, like her blood sugar was gonna like, no, but back here. I took it away for a while. Yeah. And they started talking about, you know, like, bazel. You know, everything you do with insulin is not for now, it's for later, you know, every decision you make with insulin right now affects later, it's not really affect Yeah, as much. So I'm like, so I've basically by taking her bazel away in that 1011 o'clock hour, I've created what's going to be a black hole of basal insulin an hour or so in the future. And I was like, so I'm going to need extra power there to overcome it. So I put in enough insulin to overcome the food. I put in her regular bazel. And I put in some extra bazel to just sort of try to keep on top of things. And you can see her blood sugar, by the way, cruises out of this graph at one 10th. Really cool. Excuse me, but it's not, no one would think like that. Yeah. And then just this morning, someone reached out to me online and was like, hey, my daughter's blood sugar got really high this morning out of nowhere. And talking about like, What happened there? And I'm like, No, what happened before and it turned out the kid was low overnight. And she'd taken bazel away for a while. And I was like, yeah, so that is one of those moments where you're creating a problem hours from now. Like, yeah, fixing your problem right now, right? You're taking it all the bazel away, and it's keeping this low blood sugar from getting any lower. But when it starts to pop back up, you basically have to look back at that base and go, how much did I take away? I need almost all that back now.
Kelly 56:55
Yeah, we actually did that. The other day. She I think her birthday was yesterday, we did her birthday party on Sunday. And this was the first time we've had a bounce house for her. So we got you know, 15 kids in the backyard going crazy in this bounce house. I had originally thought like, Oh, I should have some sugar free drinks, like set aside for her so she can drink whatever. Are you kidding me? Like we're given her juice, like everything, all the carbs so that she can continue jumping. And she had an amazing graph during the day. And we had actually got to the point where we just straight up took her pump off, which is another thing that we actually like about t slim is it doesn't have to be on her 24 seven, like we can take it away, she can have a bath or do whatever. But we took it off and just let her go and play and be a kid. And we actually experienced that. Like she had great blood sugar control during the day, because the jumping was of course keeping her low. We gave her all the juice and stuff. And then once she took a nap everybody leaves. And then it starts creeping up creeping up and we had like a couple hours of low high, but just have enough start pushing that bazel back end because yeah, she'd been without it for a few hours
Scott Benner 58:05
when you took the pump off. Yeah, it's so interesting to hear people like it is very true that everybody's different and that there are gonna be things that excite one person about something the other, because I feel this like you just said something you feel very strongly about it. And I'm not negating it. We like the T slim because we can take it off. And yeah, I like the Omni pod because it doesn't come off.
Kelly 58:25
Exactly, because I'll be in that position when she's older and doing sports and stuff but honestly right now too it's just it's so big on her little body like 40 pounds and like little stick arms and she is tall for her age. So it just I don't think it would work but I do really want to try it at one point. And I think you know as technology gets better and stuff we're going to be switching around anyways. Like I'm not 100% tied to anything. If someone's going to come out with better product Guess what, that's where we're going cuz she's three we're gonna be dealing with this as parents right for at least another what 23 years while she's on our insurance and then from there
Scott Benner 59:04
don't switch on the sake of switching but when something's better it's Oh yeah, you know I I've been in a room before the army pod I'm like keep innovating because Yeah, I like you guys.
Kelly 59:14
Yeah. excited for like control IQ just got FDA approval. I have no idea whether she's actually eligible based on her age or not. But I'm like are knows great and I'm sure he'll push for it too. If he thinks it's gonna be a good thing. Maybe one of those like, let's give it six months and see if there's any bugs that may be worked out before we try it on the three year old but you know, I love the technology. And I I feel for these newer parents too because they are kind of scared I think sometimes because they are so rely on it. But you know, we'll do during the Dexcom two hour warm up, depending on what she's doing. I may finger poker once, maybe twice during that time period, just to make sure that what I think is supposed to happen is actually what's happening first. But for the most part, yeah, like, that's fine. I will say I think one of the biggest things, it's funny, my brother just moved back to town. him and his wife were living overseas for the last two years. And they're in town now. And they're like, yeah, we're here. We want to learn how to take care of her. You know, where do we start? I'm like, um, I feel like if you had asked me that a year ago, I would have given you you know, all the rules that the doctor gave us. Now, the hardest part is just so much of it does require that forethought, like you were talking about. You have to know what's going to happen a few hours from now, as far as what to do with the insulin. Our babysitter's rocked it with that, and my mom, who's the other babysitter, my mom and dad, they rock it. But other than that, like you can't explain to someone how you do what you do when you just do it. Does that makes sense? Like I can't explain why I decided at this point, oh, maybe I'll give her a little snack or something. Or why I'm deciding to do a Temp Basal instead of a correction. It just, it's what I do. Like you live with it day in and day out, you just do it, and hope it works. And if it doesn't work, you bank it for later. But that's something that's so incredibly hard to explain to someone, especially when it's someone who wants to be able to watch your child. So I almost feel like now the biggest thing we can teach someone is, these are, this is what a low is, this is what needs to happen if it's an emergency low situation. So I have friends I've been able to leave her with, you know, they live five minutes away, I've like left her and then run home to do something or whatever she's been there for like an hour. And of course, like I have Dexcom so I can follow her on my phone. And I can call them if I see something going weird. But for the most part, like I just need you to know what to do. And an emergency is really the biggest one. Because otherwise I'll just tell you what to do.
Scott Benner 1:01:55
super glad that you know what to do. I'm even more happy that you don't know how to explain it because that's one less person is going to decide to try to make a podcast one. But But I do you are you at the point yet where you can do it remotely? Like that it like in your head? Can you can you do it without being there yet?
Unknown Speaker 1:02:15
What I mean? Like,
Kelly 1:02:17
like how what to do for her? Yeah,
Scott Benner 1:02:19
like, I haven't been with Arden for the last six hours. But if she completely lost her ability to be to do anything, I could tell people right now what to do remotely? And I haven't been with her. I haven't seen what she's done. Oh, yeah. Tell by the graph and how things have been going like what to do, can you it's almost like, it's almost like being like an IT person. Like, like explaining how to get through someone's computer with out seeing their computer. Like I feel like that with diabetes like I can I can get you through this program without being there.
Kelly 1:02:54
I think so. Yeah. Like her, her babysitter just text me like half an hour ago and was like, hey, she hasn't eaten anything since you dropped her off. But she started to get high. Did you want me to do a correction or Temp Basal? And I was like knowing that information. Let's do this. Sometimes I'll see that she's high. And I'll text whoever has her and be like, Did she just eat something? Or was that out of nowhere? And they'll be like, Oh, yeah, she just ate but I didn't dose her enough or whatever. So General, as long as I know why whatever happened happened, then it makes sense. But yeah, I mean, I can use look at it and be like, Oh, she must have eaten here or something. Except on those beautiful days where there is no spike, then it's like, Wow, did she actually eat today? I don't even know.
Scott Benner 1:03:36
That's very cool. So listen, I'm thrilled for you. Because you've obviously come a long way in a year, I'm a little disappointed that you didn't tell the people in your life who wanted to learn about diabetes, listen to the podcast. And other than that I'm feeling good about what we owe. And
Kelly 1:03:51
well, I have actually my dad has started listening to the podcast, and he's hoping he'll be caught up before my episode actually airs. But yeah, he's he's learned a lot too. And he's kind of caught on the same way. My husband is like, Oh, well, yeah, this is what you told us originally. But now that you've been listening, this makes sense. So he listens usually an episode a day cuz he rides his bike to work. My mom is just not really a podcast person. But she does really well to just kind of guessing on carb counts. And you know, same thing if it's not enough or too much or whatever. And our babysitter's amazing like, it sucks because we really only have a couple people that I really trust to watch her for long periods of time. But, you know, it's really no different than people who don't have family that live close by like you have wire to solid babysitters, and then you just take your kid with you everywhere. How they're,
Scott Benner 1:04:40
yeah, no, I hear you. Well, listen, I just heard back from Arden about our lunch. Two things. I don't care if your mom's not a podcast person or not. That's not an excuse not to listen. Arden's blood sugar's 90 right now. And she told me she ate everything except for the half of the bagel. So we just did 20 more carbs. So basically We ended up doing I thought it was at in the bag total, I'm guessing I don't know how many grapes there were, I don't know how many. Basically when I put the bag of grapes and cherries, and I thought to myself, it 20 and then I put into cookies and I don't remember, I didn't look at the carbs, but I remember thinking 15 so like, there's 35 I guess she didn't eat the bagels to the bagels out the popcorn is like another 15 maybe so 50 and then I'm in that of course weird space for I don't remember the other thing I put in there. Oh, I gave her two little pieces of chocolate. Because I'm Oh boy. And that's like the most I know about periods. I figured she'd want chocolate. So I put like a couple little dove chocolate hearts in there. And I don't remember what else there must have been something else I'm not thinking of right now. So we'll just do that. And then if in the next 30 minutes, I see any indication that our blood sugar is trying to run, we'll just yank on the leash and pull it back before it gets away from us. Do you
Kelly 1:05:59
find though that those things are going to hit her differently? Because like everything you mentioned, I'm like, okay, cookies would hit her later chocolate would hit her later. cherries and grapes, those are going to hit her immediately. Like just with the complex versus simple carbs. She leveled out it though.
Scott Benner 1:06:13
But yeah, but at the same time. If you think back to when we did this, it's been 30 minutes, 35 minutes since the first insulin within. So that's all there now it's active. So I'm basically creating an extended bolus right now by doing this.
Kelly 1:06:29
Yeah. Faster stuff.
Scott Benner 1:06:32
There's I'm trying to think 918 36 probably like four. Actually, the first Bolus was five units.
Unknown Speaker 1:06:42
Five, no,
Scott Benner 1:06:44
yeah, five. And this next one's two and a half. So yeah, you know, that'll be it. So it's basically like Pre-Bolus, saying five and putting two and a half and a half hour later when she ate more. It's not perfect. This isn't going to work perfectly. But it's close enough for this scenario where she's like, look on my stomach hurts. And I might not eat all this.
Kelly 1:07:03
Yeah, you know, well, and so grapes reminded me when my husband was wearing the Dexcom. We, he did an accidental experiment where, you know, he had like his lunch and had grapes with it, and, you know, no major change or whatever. And then the next day, he decided he was going to have just a handful of grapes with no other food. And that shot his blood sugar up because they are like straight sugar, you know? We realize like, oh, okay, so even in the non diabetic person, like the food is basically working the same way. He says simple sugars with complex carbs. It tends to kind of even them all out. Yeah, versus you eat straight sugar by itself. You're gonna go up.
Scott Benner 1:07:47
By the last couple of days, excuse me. Arden's after school snack has been late. It's like she's, like, all of a sudden, she's a 55 year old lady on a Sunday evening watching television. So crackers and cheese and grapes and stuff like that. And, and I'm seeing, you know, no real impact in the beginning, and then it gets really harsh, like 45 minutes later. Yeah, you know, we just kind of adjusted a little bit how we put it in. But this was really great. Kelly, thank you for coming on and doing this. I really appreciate it. I feel like I did that. Was there anything that we didn't say that you were hoping to say? Oh, I have. I want to find out your bit. So you're six months pregnant? At the beginning, you said my husband doesn't know what I'm having. But I do. So before that, but then we never said it. So what do you have any?
Kelly 1:08:34
Yeah, so we will be doing like a gender reveal type thing and the next month or so? Because we only have like three months ago. But yeah, I found out at the ultrasound because I don't like surprises. But we are having a boy this time. So we'll have one of each and hopefully at least one without diabetes.
We'll see how different that can be.
Scott Benner 1:08:55
Good Hope. Yeah. Well, one of each is nice. That's it. Congratulations. Yeah, he'll be excited. Was he is he looking for a boy?
Kelly 1:09:04
Um, he we were actually both really hoping for another girl. So it actually took me a minute when I found out to like, process it because I really wanted to be able to like reuse her clothes and you know, have that whole like little girl experience again, but I'm, I'm happy about it now. So I'm sure he'll be happy either way. He's, he's big on cars and stuff. So he'll love Oh, boy.
Scott Benner 1:09:22
Do not forget to blame him. After you tell him. Just be like this is completely your fault. Right you I wanted another girl and now that I've done
Kelly 1:09:32
right, you control the gender here so it's not on me. Wait, I'm just throwing it. And
Scott Benner 1:09:36
don't forget later to tell your son. How you were hoping you'd be a girl?
Kelly 1:09:41
Yeah, yes. I will be sure to remind you of that. Yeah, no, I never decided Alexis is super excited to be a big sister. And I think she'll be great. So
Scott Benner 1:09:52
congratulations. Let me be the first one. Does anyone else know besides you and I and the doctor up?
Kelly 1:09:57
Yeah, a couple of our friends. No, but they've been sworn secrecy. So,
Scott Benner 1:10:01
I felt like it was just me now that it isn't.
Kelly 1:10:03
But hey, maybe Scott will be a contender for the name.
Scott Benner 1:10:06
Wait a minute. Let's get to that. Is it anywhere near the running?
Kelly 1:10:12
It could be because it's actually my brother's middle name. So it's not 100% out of the realm of possibility,
Scott Benner 1:10:17
right? I'm gonna let you go. But let me explain to you how to handle this. Okay? If you end up using the name because it's a family name, that's cool. But when you tell me you don't mention that, you just say absolutely. I gave the baby Your name Scott. You don't even have to say named him after you. My ego won't even hear that part.
Kelly 1:10:33
It'll be like Scott juicebox meter something go crazy.
Scott Benner 1:10:35
I don't want you to lose your mind. Just when you tell me you lie to me and tell me it was for me? Absolutely. I want to have a stable of Scots by the time this is over.
Kelly 1:10:46
Yes. Pardon me? Well, you're gonna have all these babies named.
Scott Benner 1:10:50
That's what I want. That's why I want to like a little army case I ever need like a security force when I get older.
Unknown Speaker 1:10:55
Exactly.
Scott Benner 1:10:56
What would I need a security force for by? No, you imagine? Well, I want to thank Kelly for coming on the show. Even though she did not end up naming her baby Scott was a pretty big letdown. I emailed her just the other day and I said, Hey, your episodes going up soon. Any chance that kid's name is Scott. And the answer was no. said it was in the running. I know better. Kelly. Thanks so much to touch by type one. And the Contour Next One blood glucose meter for sponsoring this episode of the podcast go to Contour Next one.com forward slash juicebox or touched by type one.org. To learn more. There are also links in the show notes of your podcast player and at Juicebox podcast.com. I'll see you soon.
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