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Podcast Episodes

The Juicebox Podcast is from the writer of the popular diabetes parenting blog Arden's Day and the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad'. Hosted by Scott Benner, the show features intimate conversations of living and parenting with type I diabetes.

Filtering by Category: Thyroid

#429 Piggy Pancakes

Scott Benner

Type 1 diabetes from a child's perspective

Jaden is eleven years old. In this episode he does an inspired job of describing life with type 1 diabetes.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or their favorite podcast app.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome to Episode 429 of the Juicebox Podcast. Today's show is special. It's with my friend Jaden. Jaden is 11 years old. He's had Type One Diabetes for two years. And in that time, he's had to overcome a couple of different issues. Jaden does a remarkable job of sharing his story, and articulating his feelings. I hope you enjoy listening to our conversation as much as I enjoyed having it.

Today's show is with an 11 year old Jaden and Jaden wanted to come on the podcast after he heard Jonathan on episode 384, after dark bipolar, Jaden has had some issues with depression. And he's had Type One Diabetes for two years. He came on the show today to try to help other people. And he did a magnificent job. Some of you are probably skeptical of guests that are very young. But I implore you to listen to Jaden does a great job of explaining his situation. And even towards the end of the episode has some revelations. It's incredibly worth your time.

Please remember while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise. Please always consult a physician before making any changes to your healthcare plan or becoming bold with insulin.

This episode does not have any ads but I would like to remind you that the Juicebox Podcast is sponsored by the Dexcom gs six continuous glucose monitor by the Contour Next One blood glucose meter, the Omni pod tubeless insulin pump, g Volk hypo pen touched by type one. And please don't forget to visit the T one D exchange. There are links in the show notes and links at Juicebox podcast.com. All of the sponsors, you can get to them directly by typing in dexcom.com forward slash juicebox Contour Next one.com forward slash juicebox my omnipod.com forward slash juicebox T one d exchange.org. forward slash juicebox touched by type one.org and G Volk glucagon.com forward slash juicebox. That's it for the advertisers today. But please remember that by supporting them, you're supporting the show and keeping it free. So if you have a need for an insulin pump, a glucose monitor a meter some glucagon helping people with type one diabetes, or getting involved in research. Please consider using these links.

Jaden, how old are you? 1111 Wow, I don't think you're the are you the youngest person maybe to ever be on the show? I'll have to figure that out. I'm not certain you might be. How old were you when you got type one diabetes?

Unknown Speaker 3:35
Nine, nine.

Scott Benner 3:37
So you've been doing this for a couple of years? Yeah. How's it going so far?

Unknown Speaker 3:42
Um, no,

Jaden 3:44
I don't like and it frustrates me and stuff. But, um, before, I wasn't taking very good care of it. But now I'm trying to do better since I heard that. I was going to be on this. And I was trying to do better before but it just always frustrated me. And I've tried to basically as my mom would say, I tried to over come in I tried to like kick its butt and tell Oh, I I tried to like tell it that I'm better.

Scott Benner 4:24
So were you trying to overpower diabetes without taking care of it?

Jaden 4:29
Yes. And I would like sneak snacks and stuff. But I'm now I'm like taking better care of myself and stuff. That's really good news.

Scott Benner 4:40
Well, let's find out a little bit about that stuff before you know when you were a young man of nine. So you get type one diabetes and your How was it explained to you or what's your understanding of it when you get it? Do you remember?

Unknown Speaker 4:56
Oh, wow,

Jaden 4:58
I had to stay in the house. hospital for two weeks and a day. I, I originally went into the hospital because I got hit in the head with a basketball play in a basketball game. And so I just had a really bad headache. And I went to the hospital and I will well that that day I woke up with a red eye and it was also a it was also puffy. So So my parents took me to the hospital, and they said, I had mersa. And then it was like, they said, I had mersa and orbital cellulitis. And it was like, inside and behind my eye. Wow. Yeah. And then, so they

Unknown Speaker 6:00
ended up

Jaden 6:04
like, I still wasn't doing good and stuff. So like one night. I just started wetting the bed bed really bad, which I would like, never really did. And my mom told them to test me and they tested me for like strep throat and stuff. And everything that it really couldn't be. And so

Unknown Speaker 6:33
we told them to

Jaden 6:36
my mom told them to test me for anything else, and they tested me for diabetes. Then it came back, like 500 or something. Yeah, my sugar was like 500. And I just like my mom was outside crying in the hall. And I'm like, go ahead, tell me. And she told me and I started crying. And then

Unknown Speaker 7:04
yeah,

Jaden 7:06
I just cried a bunch. And I just felt like life suck, did everything. And my sister. She came some of the days and so did my dad and my mom. And then I got a bunch of letters from the kids at school. And that kind of made me Cheer up, um, and the people from our church, and, um,

Scott Benner 7:36
she got a lot of support from people and that that definitely helped you feel better.

Jaden 7:40
Yeah. And then there was one lady that was there at the hospital and she was my favorite and all of them. And she played games with me like that. We had a we in there that the hospital supported. I think we had a Wii and the Xbox and a ps4. But my sister didn't get an Xbox till, like, last year. So I didn't know like how to play on the Xbox and stuff. And I didn't really like it. So that crossed out the Xbox and I don't like ps4. So I just played on the week because we have one and Jaden, it's funny, isn't it? You weed in the bed and then you got to play we in the hospital. Exactly, exactly. Right.

Scott Benner 8:29
So was the cellulitis in your I know that you were really little when this happened? But was that a function or part of having undiagnosed diabetes? Did they say Do you remember?

Unknown Speaker 8:40
exactly sure.

Scott Benner 8:41
Okay. I'm not either. So. I mean, I just made a p joke. And I'm 50 so I don't really know a lot about medicine. But okay, so you got to the hospital, they found a number of different issues. That's probably why you were there for so long that the diabetes part of it, but they're also helping you with the cellulitis and that you got hit with the basketball. Did you have a concussion by any chance?

Unknown Speaker 9:04
I think so.

Scott Benner 9:05
What have you learned from this? You gotta keep your hands up and you're playing basketball, right?

Unknown Speaker 9:09
Yeah.

Jaden 9:10
What happened is actually I don't think I had a concussion but

Unknown Speaker 9:15
what happened was

Jaden 9:18
my friend was making well so right before that happened, I lead like a very long shot. It was like the middle or second to middle on the on the other team side, and I shot it and I made it and then my friend tried to do same thing. And I was like talking to one of my ever friends cuz I didn't hear the whistle blow yet like it was well, it was after the game but my friend was making shy and me and my friend were talking about stuff and then my friend shot the ball and hit me in the head. he mistook

Scott Benner 10:04
your head for the hoop. You think I guess your head look like a basketball hoop,

Jaden 10:09
but he's, I don't know, but he was pretty bad at he's pretty bad at basketball. And

Unknown Speaker 10:18
he always, yeah, he

Jaden 10:20
always tries to do shots. He can't make like, he's always short on basketball.

Scott Benner 10:29
But he diagnosed you with Type One Diabetes.

Jaden 10:33
Well, I know I'm fat. I had it before that, but Oh, really? Yeah. That's what she thought. But um, my friend, he felt really bad. And he said, I'm sorry. And I said, It's fine, dude.

Scott Benner 10:48
I imagine. He didn't I imagine at nine years old. He probably felt terrible. Like he probably felt like he hit you in the head, man. You got diabetes?

Unknown Speaker 10:56
Yeah, yeah.

Scott Benner 10:57
Did you get you a good present for your birthday that year at all? Um,

Jaden 11:03
I honestly forget what he I think he got me a big gift basket. As soon as I got home filled with army guys and monster truck, see

Scott Benner 11:12
if it works. And that's a long time ago. That was like 20% of your life ago. It was a really long time ago. So yeah, Jaden, do you have any other health issues that you're dealing with besides the diabetes?

Unknown Speaker 11:27
I mean, no.

Unknown Speaker 11:31
I mean, I have

Jaden 11:34
a little I had a little bit of depression. And I still can't do but I had to go to a psych hospital. But because I just there was a couple years ago, I just wasn't, like very good, but I had to go there and they made me take off my vices and stuff.

Scott Benner 11:59
Let me ask you that the way you felt that led to going to the hospital, did you feel that way before the diabetes, or was that after diabetes?

Jaden 12:10
I think I always want to blame it on my diabetes, I think I want to blame everything on my diabetes, but um,

Unknown Speaker 12:21
I think

Jaden 12:22
it was a mixture of that. And I'm adopted, and I never got to see my birth parents or anything. But they're, they just weren't in a good state and stuff. Like, they're into a bunch of nasty stuff. So and a lot of my siblings are but the slash share, I got to talk to my birth sister. Her name is passion. But um, yeah, so that kind of help on leave a little bit of like, pain and stuff in me cuz I just kind of feel I kind of felt abandoned because like, as soon as I was born, like, three hours after I was born, my mom walked out of the hospital to get drugs.

Scott Benner 13:18
I'm sorry. Hey, um, I'm adopted. Did you do that?

Unknown Speaker 13:24
Oh, you're Yeah,

Scott Benner 13:26
yeah, I was adopted when I was. I mean, I was put up for adoption right away when I was born. And I think my parents got me. It probably in the first month or so I had to go to, like, through the foster system, I guess it was like it was 100 years ago. So it was a really long time ago. I think, basically, they took me out of the hospital. And they put me in a cardboard box. And the nice lady came by, and she took care of me for a while. And then I got adopted. I think that's about what happened, I might be wrong. But my parents adopted me. Like I said, in the first number of weeks of my life, and I've always known that I was adopted, I don't remember being told. And I find sometimes when I'm talking to other people who are adopted, that they kind of fall into like one or two different, pretty specific categories. I feel like they either really care that they're adopted, and it's upsetting to them, somehow, or they don't seem to mind at all, or at least say they don't mind. And I'm sure there's other character characteristics around being adopted. But those are the two that I've bumped into the most. And I am I never had that feeling like like, I wish I knew who everyone was and that I could meet people but I understand that you felt that way. Yeah, so you think maybe underlying throughout your very throughout your life, you felt like you just wanted to meet people and why would somebody just leave you? Is that the kind of the feeling

Unknown Speaker 14:59
Yeah.

Jaden 15:01
Like, it just kind of made me, it kind of hurt me like just knowing that someone would do that. Like, if I had a kid, I want to leave them to go get drugs, and stuff.

Scott Benner 15:17
Dude, I can tell you that some of the best lessons that I've learned from my dad who's no longer alive. And this is the man who adopted me. Like it, you hope that you learn from adults what to do, right? Like, you hope that somebody does something. And it's a really great example. And then you just go like, that's how you be a good person, I see it happen every day, my somebody in my family or my life is a good person. And that does happen, you will meet people like that, where you can kind of be aspirational about them. And I met plenty of people along the way who were like that, but they ended up being people I've worked with, or friends that had great traits. And I know this is a weird conversation, maybe. But what I learned to do was to look for the examples and other people that I hoped came from family. Yeah, and so if my family didn't do the things that I thought were very valuable and worth, you know, trying to mimic or be like, I would, you know, do it other ways. I, I used to work with a guy who had a great sense of humor. And I thought that made a lightness about him. And I could see that he had problems in his life, but he never acted like it. And I thought that that's a good way to be. And I had been like that when I was younger. I met people who were very thoughtful. kind, I've met a man who was very giving just a lot of people along the way. And I would just kind of cherry pick, just take the good parts of them and think, well, that's something that I might want to do. But back to my dad, who was my adopted dad, not even my birth dad. He was just, you know, he was fine. But he wasn't a great guy. And what I would do is I would see the things that he did that I didn't think were good. And I would just think Alright, well, there's a good example of how I don't want to act. You know what I mean? And so sometimes people are good examples, in a bad way. Sometimes they do something that makes you think, alright, that's definitely not the way I want to be. And, you know, so sometimes it's just how you look at it. Because you could be sad that they're not the people you want them to be. Or you can, you know, turn and look at your mom, you know, now and say, here's a person who really cares about me is taking care of me, you know? Yeah, it sucks, man. I know. But I can tell you, it's gonna get better. And there'll be times in your life where you'll look back, and you won't even remember feeling like this.

Jaden 17:50
Right? I can even say that my mom cares about me a little too much

Scott Benner 17:56
does she? How come?

Jaden 17:58
He just does like she's all like, she's just taking care of me in it sometimes. Sometimes when she takes care of me, it just gets kind of annoying.

Unknown Speaker 18:12
In a good way.

Scott Benner 18:13
Moms that are good are annoying. Oh, she hugging you too much. You think she knows that.

Unknown Speaker 18:23
But

Scott Benner 18:25
I can tell from the times that your mom has written to me over the years that she really loves you and cares about you. And I think that's terrific. Yeah, good for you, man. Look, you have somebody just like you wanted, you know?

Jaden 18:37
Yeah. And my bike I like came out with my dad. Like, my mom's The one who cares about me. And my sister was the one that grumbles about me. And my dad is the one that as soon as I as soon as he gets home from work or says I used to get off the bus. He's the one that would wrestle with me.

Scott Benner 19:03
Yeah, that's how it goes. Man. That sounds like a good family to me.

Jaden 19:06
Like as soon as I walk in the door, he'll like tackle me.

Scott Benner 19:10
Well tell him to be careful because you don't know how to catch a basketball. I realized the boy threw it at you but that's not the point. Yeah. So interesting. I guess you can you tell me. You said you went for your depression. You went to a hospital? How long were you there?

Jaden 19:28
Oh, I think I was there about

Unknown Speaker 19:32
a week.

Scott Benner 19:33
Okay. And well shorter than the diabetes. That's not bad. Did they teach you like what do you learn there? How do you what do you get out of it? That helps you?

Unknown Speaker 19:46
I mean,

Jaden 19:48
they basically like, do yoga and they're it's kind of weird.

Unknown Speaker 19:54
teach you to relax a little bit.

Jaden 19:56
Yeah, but um, the lady that did the Yoga. She was a little bit of a psycho. She was crazy.

Scott Benner 20:05
No, no, no, Jaden those those people are called hippies. They're not. She's not crazy. She's just, you know, she's just living life a different way. That's all. Did she teach you anything that was valuable? Oh,

Jaden 20:20
well, um, she was really crazy. And me and someone else was like laughing at her and we kind of bonded there.

Scott Benner 20:34
You found a friend making fun of the yoga teacher? That's nice.

Jaden 20:36
Yeah, yeah. So that's what I think they're they like Dude, there, they try a setup there. They try and make like, really weird activities to do to try to help to try and make you think you're calming down by it. And then in order to do that, they have to have like a crazy person up there. And then the people laughing bond and make friendships. So you think and that's how they deal with their depression.

Scott Benner 21:07
You think that this lady's so smart that her plan was to irritate you into having a conversation with the person next to you and forming a friendship? Maybe Hey, listen, then if she did that, she's kind of a genius, don't you think?

Unknown Speaker 21:24
Right.

Unknown Speaker 21:25
I guess so.

Scott Benner 21:26
Did I just hear that you're on the pod might be expiring soon.

Unknown Speaker 21:30
Yeah,

Scott Benner 21:30
yeah. That's cool. How long till it's done?

Unknown Speaker 21:33
Like two o'clock, two o'clock.

Scott Benner 21:35
game today. That's what it was done. Right? Yeah. I could probably sing that in my head. It's cool that it tells you when it's almost done, because I would forget sometimes. Yeah, if it didn't. So you said earlier that you have been trying to take better care of yourself. Your diabetes, yes. In in preparation for coming on the podcast.

Jaden 22:03
A little bit of that. And I was also trying to do it before good. But I will say that before, I wasn't trying as hard, okay. But I was just trying to do better. And I'm going to try to work harder even once this is done. And but I just didn't want to come on here with like, an A one seed. It's like eight or nine.

Scott Benner 22:32
There's nothing wrong with that, man, you get into something.

Jaden 22:34
Yeah. But I, my mom always wants me down to be like, she wants me to be in the best condition I can be. So in the future. I can like be healthy and stuff because her dad was a type two, or type one, I forget. But he didn't really take care of himself. And that was part of the well, he just then he just didn't get around very well. He wasn't a good cheap.

Scott Benner 23:09
didn't let me tell you that your health is the most important thing that exists. So nothing else works. If you're not feeling well, you know that you're you haven't been alive that long. But you've you've learned a lot of stuff. And one of those things is when you feel better. You feel better, right?

Jaden 23:25
Yeah, yeah. And also, um, our friend from Florida, he lost his leg because of this. So she just wants me to be the healthiest I can be.

Scott Benner 23:37
Well, that's good advice. Although you can't count examples from Florida because there's something up with those people. And I don't know what it is. But the craziest news stories in the world come out of Florida all the time. Right. Yeah. Have you ever once saw a news story about a boa constrictor like killing an antelope? And you're like, Oh, that must be like, you know, in Africa or something? Like No, no, it's Florida.

Jaden 23:59
Yeah, that happened while we were down there.

Scott Benner 24:03
I was trying to make up something crazy. Jaden. But what is it you saw in Florida?

Jaden 24:07
Well, I mean, we saw some crazy stuff we shot we while we were down there. The newspaper came in like now a gator and a kid almost or something like that.

Scott Benner 24:19
Yeah, that makes your life so much better, doesn't it? Yeah, yeah. Right. Like I mean, at least an alligator ratio. Should we should have like a moment of silence for the kid that got eaten by the alligator. I didn't mean to make you laugh there. I might be like that yoga lady. Was she wearing baggy pants chin?

Jaden 24:40
I'm a little. I mean, they weren't super baggy, but

Scott Benner 24:45
they're flowers on them.

Unknown Speaker 24:46
Yes.

Scott Benner 24:47
What else can I guess? I wish you weren't a tank top. No, no,

Unknown Speaker 24:52
that'd be too crazy,

Scott Benner 24:53
too crazy. It's probably not allowed to be not allowed to do that around the kids. But okay. So, what is it? Do you listen to the podcast?

Jaden 25:03
Um, I mean, my mom will sometimes Listen, I, I mean, I wouldn't I don't do it by myself, but my mom would sometimes listen. And like if she's listening to one in particular that I like maybe like, the one with Jonathan, um, I walked in from school, and I heard her listening to it. And I asked her, can you restart this? And she said, Why? I said, I kind of want to hear it. And she said, Okay. And we were sent to that dinner. And that one was good. And we listened to a couple offers, I forget.

Scott Benner 25:47
But Jane, do you know, it still freaks me out a little bit to think that that somewhere in Ohio, a family's having dinner and listening to the podcast at the same time, it's hard for me not

Unknown Speaker 25:57
a bad thing. Oh, it's

Scott Benner 25:58
a great thing. You should be listening 24 hours a day. And that's not what I'm saying. And on on different devices, too. But my point is that, it's if you ever do something like what I'm doing, you'll find out that your expectation in the beginning isn't that it's going to be as popular and that it's odd. Not odd, but nice and kind of strange to think that at the same time, all over the world, like people are listening, it's it's a little mind bending, I was gonna say something else, but you're too young. But it's just it's a little my unless you like to curse, and it's okay with your mom. And then, you know, I'd like to know what your favorite curses are. But we'll do that at the end. All right, so. But, but so what have you been doing with your diabetes? That's been helping because you're you're a one sees coming down?

Unknown Speaker 26:46
Yeah,

Unknown Speaker 26:47
cool. What are you doing? Um,

Unknown Speaker 26:49
I mean,

Jaden 26:51
I think a little bit. I mean, I think that what started to make me think to try and bring it down and stuff. There's two things this and like, I want to, like, be on this and stuff. And I want to try better. So I wouldn't be giving like, I wouldn't say bad examples, but I wouldn't, I wouldn't be giving a a like, example, that was like my a once he would be 12 or something.

Scott Benner 27:29
Okay, so let's pick that apart for a second. First thing, why did you want to come on the podcast?

Jaden 27:35
I want to help people, I want to maybe get some ideas from other people how to help. I wanted to, um, I want to like, do what my mom told me, I should try to do but she told me I should try be on here. And she said, maybe it would help.

Scott Benner 27:59
Yeah, I have to tell you Jaden. I don't know if you realize this or not. But I have a very long standing rule in my life. And I pay very, very close attention to it. I never break my rule, but I break it for you. You're the only one I break my rule for it's a simple little rule, but I do not correspond with children directly. So even like my, my daughter's friends, like my wife will be like, hey, text Arden's friend and ask them like, why do you think I have a 16 year old girl's phone number I do not write because Jane, if things ever gets sideways, you know what I mean? If the man ever comes, I don't want to be seen as texting with kids. You know what I'm saying? Right? Like, I just think people would see that odd, like, but you every once in a while you send me a nice message through your mom's account online. And I'm always happy to talk to you. So yeah, you're the only one I do it with just so you know. Otherwise, you're That's it? Cuz 11 the new 15 really, so we can hang up? Yeah, so you're trying to help people out? Right? And by just I guess, telling them what's happened to you and what you've done. might might help them like, sort of like maybe Jonathan helped you. Is that right? Yeah. It's funny, man. Because some people some adults don't like to listen to interviews with kids. And so like, every time one comes up, I'm there's part of me the part of me that wants the podcast to get downloaded a lot. Like I don't know, kids sometimes don't like but then I realize how helpful it is to people who do want to hear it. And then I stopped thinking about that. So I'm really happy that you're doing this and I'm glad that you had like a goal. Like it doesn't matter to me like a goal to do better is a goal to do better. But then you have to moving forward from here I have a goal that's for you. You know what I mean? Like I'm gonna continue to do this for myself so that I can, you know, be healthier because you must feel better with your blood sugar lowered. No.

Unknown Speaker 30:00
Yeah, I do.

Scott Benner 30:01
What does it feel like when it's hi?

Jaden 30:03
Oh, well, I was about to get that in a minute. The second reason I

Scott Benner 30:09
didn't I didn't mean to rush you. I'm sorry.

Unknown Speaker 30:11
Oh, it's okay. Okay, thanks.

Unknown Speaker 30:12
What's your second?

Jaden 30:13
The second reason I want to do this is because I'm in a car ride. To up to a good name, wasn't it? No. To? Yeah, good name. No, wait,

Scott Benner 30:28
hold on. While you're thinking about that, try not to let that wire up. Because I want to hear what you're really saying. Okay.

Unknown Speaker 30:40
Two.

Unknown Speaker 30:42
Crawford County,

Scott Benner 30:44
you reminded me of my uncle right now, Jade. I have an uncle who is very careful to get all the details in the story, right? Even the details that don't matter to the story. And you just you were just like, we were in the car on our way to? Um, was it Greenville? No. Was it? No, it doesn't matter if you're in the car. You're in the car. Where were you going?

Jaden 31:09
I think it was Crawford County, okay. Something. And in the car, I'd like my sugar was high that morning like to wear it when it read on the sensor. Okay. And, um, it just said hi. And my mom was up the and my dad didn't know where my poker fiend was. So I think it, we found it, but my mom checked it non night before because that was the night that we changed it. And it felt like by the couch, because she fell asleep by it and knocked it over. Gotcha. And But anyway, we left then my dad said try and bring it down with your pump. And I said, Okay, so I gave myself insulin, and we wait a little. And my cousin was with us. So I sat up front, because I wasn't feeling good. I can't sit in the back if I don't feel good. And if I yes, but um, and then I didn't listen often. So and again. Because I still wasn't down. My dad stopped at Tim Hortons. And he said, Eli, Do you want anything? Because that's my cousin's name. And he said, maybe. So he went in, and my dad got something, Eli got something. And I said, Dad, can I have some fun? And he said, okay, you can, but you better not let your sugar go higher. And I said, I'll try not to. So he got me. The drink delight. And we went a little more, and I couldn't drink my drink. Because like, I felt like I was gonna throw up. Cuz you typically do if you're high, I mean, and so I ate the I tried to drink the shake. I mean, the coffee, but I cannot do it. So I said it there. And my dad had to drink it because it was melting. So I'm, like, on the way to a gas station because we were making a pit stop. I threw up in the car. And my dad was like, are you okay? And I said, I think we need to stop up here discuss the issue. And he said, Okay, we'll do that. And yeah, and then I had to get through ecig ketones out by pain. So, um, yeah. And then

Scott Benner 33:59
so you had a really high blood sugar during a car ride with your father who doesn't sound like he's not the main person who helps you with your diabetes, right? He's more Yeah, the wrestling tackling guy. And so and the poker was jammed under the sofa because your mom fell asleep. By the way. This is why you're not supposed to smoke sit laying down because you could fall asleep and burn the house down, except your mom fell asleep and knocked the poker over very similar situation. And so you don't make it. And so and so you're having this obviously, your blood sugar's super high. Was it normally high a lot or is that wasn't common?

Jaden 34:37
Um, it wasn't really common. That was, well, it's typically high. But um, I mean, it's not typically high like, my shoulders like a roller coaster, ooh, all the time. It will go up and down and up and down. But it's typically high but um,

Scott Benner 35:00
Okay, so but this so this is something that you've had to deal with in the past, you just didn't have all the tools to take care of it, you're in the car doesn't make you feel good. Like there's a lot of different problems.

Jaden 35:08
Yeah, but I mean, it's never been like Chi for all day, pretty much. It's just been high for maybe an hour or two at the max guy. And so I wasn't used to it being high all day, and typically shy of kinda, I wouldn't say friend, because I like I knew him when I was growing up, but I was too young to remember it now. But, um, he's been well, not now. But he's in Florida right now, I think. But he has type one diabetes. He's a friend from church. And he's my mom's friend's kid. He's 21 I think 2122. But he has this and he would like me and him talk after church and stuff and

Unknown Speaker 36:14
stuff like that. But, um,

Jaden 36:18
but he said that, like, he was surprised that I didn't feel anything when I was hired. Because like, when I'm high, I don't feel nothing. Except for that day, like, every time I'm high and stuff, like if it was for two hours, one hour, 30 minutes, I wouldn't feel anything. Like it would just feel normal. And I wouldn't feel anything. So he was kind of surprised about that. Because like he said, he always felt something when he was high. And I said, Yeah, it will probably hit me more sooner, though. And as soon like, as soon as I said that, like a couple days after that the car ride happened on white Street. But um, and at the gas station. Yeah. I just didn't feel good at all. And I think up through up again there. And then we ended up going to, I think the next stop we went we went straight to Crawford County. Yeah. But then we, we went to his grave. Crawford's grave. No, Colonel Crawford. That's it. And we went to his grave. And there were a bunch of other tombs there.

Scott Benner 37:51
Jaden. Let me stop you for a second because I'm, I have been since you started talking about this, this part of the story. I have been trying to figure out what Crawford was. And now I'm thinking you were going to visit like, like a historical site with your dad. Your Colonel Crawford. Colonel Crawford?

Jaden 38:11
Yes. And he? He was friends with George Washington.

Scott Benner 38:14
All right, hold on a second. He didn't happen to know Colonel Mustard. Do you think Hold on a second. I just learned that I don't know how to spell Colonel. That was pretty embarrassing. Hold on a second. I got it. I'm on top of things now. Colonel Crawford High School. Oh, isn't Ohio, Colonel Crawford. Today, we're gonna figure this out together. William Crawford. Is that sound right?

Unknown Speaker 38:43
Uh, I don't know.

Scott Benner 38:44
Okay, so you were off. I see a painting of him. And let me tell you, he looks fancy. Us. I'm not making this up chin. So you and your dad, you're getting this now. You and your father and your cousin went on like a little day trip? To check out like some historical sites?

Jaden 39:07
Yes, it was for my school. We went up to Colonel Colonel village or whatever it's called. And we went to see his tombstone.

Scott Benner 39:19
Gotcha. You didn't throw up on his tombstone. Did you know good job. Wait, hold it together. All right. And you know, though, now what does this story about Colonel Crawford which by the way, Colonel Crawford is a strong contender for the title of your episode. Just so you know. Where Colonel Mustard I haven't decided yet. What What does that have to do with why you wanted to be on the podcast? He's there's two reasons you want to be on the podcast said to help people and then because of something that happened in this story. What happened?

Jaden 39:54
Well, we once it flew up, I felt better and stuff. But um We went to go out to eat after and my sugar was so high and stuff and we then they seem to think that there could be something wrong with my pump. So we just kept going and stuff. And then I said, Wait, what if there's something wrong with my pump and that's it. My dad was like, oh, that could be and I gave myself insulin with the shot and I came down a little but not too much. And I still wasn't feeling good or anything after but we were going to eat at Bob Evans, but then we ate at Taco Bell. I think

Scott Benner 40:40
when for the border.

Jaden 40:42
I got like 767 cheese roll ups,

Scott Benner 40:49
six or seven cheese roll out to try to stay away from the carbs.

Jaden 40:54
I think those have actually a lot of carbs.

Scott Benner 40:56
I don't know that you can get anything at Taco Bell. It doesn't have carbs. Did the pump site end up being bad? You? Did you learn that through injecting or no?

Jaden 41:04
Yeah, we did. And it worked at all. And then we went to Taco Bell. And because like we already gave our cell phones one for Bob Evans. And then we realized is that it was close. So we had to think of a high carb place that we could eat because like pink I gave myself like eight units because I was going to have a piggy pink cake. Like two of them.

Scott Benner 41:31
Piggy what Say that again?

Unknown Speaker 41:33
Hanky Panky cake.

Scott Benner 41:35
pancake. I'm googling Hold on a second. Oh, it's a pancake that looks like a pig.

Jaden 41:40
Yeah. bananas and I chocolate chips. Is it smile? That's cute. Yeah, me. My grandmother passed away. She passed away I think last year or something. But she used to always take us to Bob Evans when we stayed the night, me and my cousin both. And we would always order the piggy pancake. It was our favorite thing to get there.

Scott Benner 42:05
Nice. Now your episode is gonna be called piggy pancake in case you're wondering, hey, listen, I only have two pieces of advice for people. If your blood sugar doesn't move, when you're injecting, you know, when you're putting insulin in with your pump. A quick and easy way to see if your pump site is bad is to inject some insulin with a needle. And because if you put it in like that, and your blood sugar starts to move very quickly, you can assume that maybe the site is starting to fail. That's the one thing I tell people all the time. The second thing I tell people, Jaden is don't eat at Taco Bell. That is not really food. That's not good for you. Listen. Let's take a small sidebar for a second here. Colonel William Crawford was born in Berkeley County, Virginia in 1732. As you said he met George Washington who then was a young surveyor. They taught him a trade and then hired him to do some surveying in western Pennsylvania. Now there's much more information here. Somehow this story ends with in 1927, a stone wall was erected near the site where Colonel Crawford was captured on June 7 1782. They don't know where his body was buried. So I don't know how he went from like, hey, George Washington, what's up to I was captured. But it seems like a very gangster story. There's a battle of Sandusky combined forces in the Shawnee Delaware River. There's a lot of stuff going did you learn about this for school?

Jaden 43:34
Yes, my dad took me since I'm homeschooled. I don't really go on field trips. And the virus is happening at this time, obviously. So the school wouldn't have been able to go on field trips cheaper. So my dad just took me and before we went to Grenada and cut in and that word here,

Scott Benner 43:55
hold on a second. Jaden. I'm getting excited. The volunteers were in search of Native Americans who had captured a group of Moravian missionaries from it's a word that starts with a G and then has an end which

Jaden 44:11
Yeah, grenade and hot and yeah, I

Scott Benner 44:12
think we all know that's not how you spell but good. Aiden Hutton will say and Schoenbrunn villages, well, you had all the salient details while you're telling me this. Good. All right. I'm gonna read this later so that I can understand more about this in my personal time. Anyway, what did you learn from this day? Besides pancakes that look like pigs are more fun than cheese roll ups from Taco Bell? I learned

Unknown Speaker 44:34
that it sucks to be in ketoacidosis

Scott Benner 44:38
There you go. JD that's 100%. Right. It sucks to be in ketoacidosis. You did learn that and so you don't want to feel like that anymore. Is that the point? Yeah, yeah. All right.

Jaden 44:50
And it's like after Jonathan was talking about that, like I tried to be like how he's trying to take care of But and I didn't know I would be like, exactly what happened to him.

Scott Benner 45:06
So but so you're doing better now? Is that right? Like things are just going better for you? What changes have you made that have helped you feel better and help your blood sugar be less roller coaster?

Jaden 45:19
mean? I've tried to take better.

Scott Benner 45:23
Hey, Jaden. Jaden Hold on a second. Our connections gotten bad. So I don't know why. So I'm gonna, can you push stop? Hey, sorry. No, don't be sorry. Hey, listen, James done a great job of telling a story. But the internet connection on your end is getting funky. So I was wondering if we could stop the zoom call and then go back into it again. Yeah. Okay. So just, I'll end the meeting, which will kick you out and then I need you to hit that link and get back to it.

Unknown Speaker 45:52
Okay. Hi, I'm

Scott Benner 45:53
here.

Unknown Speaker 45:56
Can you hear me?

Scott Benner 45:56
I can hear you. Yeah, you're a little clear. Okay, there's a little bit of a noise behind you. I'm not sure if like the heater came on or something like,

Jaden 46:03
yeah, that's my sister one day heater on and I told her. I told her, just try. I might. I'll tell you. I'm gonna go into the living room so you can't hear my mom. My mom said, My sister is trying to act like a fan girl. wearing her juicebox sweatshirt that my mom got her.

Scott Benner 46:29
How old is your sister?

Unknown Speaker 46:30
She's 18. Ah,

Scott Benner 46:33
that's nice. All right, said hello, please.

Unknown Speaker 46:36
God said hello.

Jaden 46:39
But she had to turn the heater on because she was cold. I say I may have a heater in your room. Right? Yeah,

Scott Benner 46:46
go warm yourself up in another place. Hey, Jaden, that's great. I appreciate you making it sound better. So let me tell me when you're settled, I don't want you to be moving around. But but so you, you went through DK that day. You Colonel DK, I guess. And and it just was something you just didn't want to go through again. And then I asked you about some of the changes you've made that are keeping your blood sugar more stable. So what are you doing now? For your diabetes that you weren't doing a year ago?

Unknown Speaker 47:23
Um, I'm like,

Jaden 47:28
I don't know how to say it. Um, I'd say like on that event kind of scared me. So unlike just not sneaking snacks anymore. I'm

Unknown Speaker 47:44
I mean,

Jaden 47:47
I don't like, I don't do this on purpose. But I free my pump. Like, I know how much stuff is like, my mom says I'm guessing on it. But like, I know how much food is like, we took a test on it and stuff. And like, I absolutely demolished it. You could say Yeah. But like, I know how much like stuff. I know how much insulin to give for stuff. And it just feels like she thinks that I don't know how to do it. And she says I'm guessing through it. And I just like,

Scott Benner 48:35
didn't I tell you a secret? Oh, I'm guessing a lot of the times too. But when I guess and I get it wrong, I guess different than next time?

Jaden 48:45
Yeah, that's what I do. I mean, like, for pizza. If I'm having like free pieces, I know it will affect me hard after. So I do like, so my ratio is like one unit every 10 cards. So I kind of guessed that like each site says about one, one and a half units. And so I do maybe six if and I have about four pieces. I'll do six units and have about four pieces. Because afterwards it will kind of affect me hard. And if I see my sugar trending up, I'll give myself maybe another unit and it will typically at least the highest that we'll go for that is about 200. If if I do it that way, if my mom does it all the time, she's right with it, but I am not trying to be found rude about it, but she's just kind of awful at all.

Scott Benner 49:50
She doesn't get that she doesn't get the numbers, does she use less insulin or more insulin than you use?

Jaden 49:56
Um, She's so funny. Number like, and what the thing I have is weird. Like, if we put in my sugar and stuff, which I typically don't do, because it like it just, it's weird when you put in my sugar, like, if you put in your sugar and it's like 200, it will add in. So it's supposed to add insulin, but like, sometimes it does, sometimes it doesn't if it's once, like my mom wants to put it in for 143. And it gave me point two, but if she would put it in for like, 250, and want to give me any insulin at all,

Scott Benner 50:38
you know why that is? I can tell you why. Okay, so if you've had insulin before that, and the pump still thinks that that insulin is active, it doesn't give you more. So there's a setting in your pump called insulin action time. And most doctors set it to like four hours. So if at let's say at 12 o'clock, at noon, you eat some food, and you don't use enough insulin for it, you mess it up somehow and don't get the count, right? And then two hours later, your blood sugar's 140. And you're say to yourself, Well, I would like to give myself some insulin to get this down. And you tell the pump, I'm 140, how much insulin should I have? It's gonna say none, because two hours ago, you gave yourself insulin, you told it, you used enough insulin, and it believes that that insulin is going to stay active in you for four hours. So if you were to have gotten it right at noon, your blood sugar wouldn't be as high. But if you were to, but the pump doesn't let you go back and say, oh, Remember when I told you this thing was 20 carbs, it was probably really 30 carbs. So you just have to, you can override what the pump wants in that situation. If you think you need more insulin, you can just dial it up and give it to yourself.

Jaden 52:08
That's what I do. And my mom always wants to put my sugar in and stuff but I don't know we do it. Because every time we get does that, but now I know.

Scott Benner 52:19
I have to tell you, I imagine that just now when you said that adult people with type one diabetes who are listening are smiling and thinking Jaden starting to get this. So good for you. That's excellent. Tell your mom to be a little bolder, right? Yeah. But so you're learning how to do these things. And listen, man, you're young. I know. It feels like you've been alive forever. But elevens pretty young. And I think if you understand it, this Well, now you're you're Pre-Bolus Singh.

Unknown Speaker 52:50
Yes. Good.

Jaden 52:52
And, and I'm doing a little I mean, it's typically I, I have a hard time waiting to eat food.

Scott Benner 53:03
Don't think about it as waiting to eat food thinking about doing something before you were even going to eat. Yeah, that's

Jaden 53:09
what I do. But like I sometimes my mom typically wants me Wait, wait 25 minutes for 30 minutes. So I just kind of watch a show. If I don't eat it. Like, in five minutes. I typically just watch a show. And that kind of helps like, frame time faster.

Scott Benner 53:28
Do you have to wait 30 minutes to Pre-Bolus Are you trying to bring down a higher number before?

Jaden 53:34
No I to eat? Like, like if I give myself insulin? She typically wants me and we always 20 or 25? If not 30 minutes till I eat. But I think I mean, I would do 20 but not 30 or 25 for stuff.

Scott Benner 53:51
Yeah. I hear you. Listen, here's what I'm going to tell you. What's your agency right now?

Jaden 53:56
Um, I think it's last time we looked at was like, a 7.2. Wow, that's really

Scott Benner 54:04
great.

Jaden 54:04
Your 6.8 and when I was in the hospital, I think it was maybe nine.

Scott Benner 54:11
And that wasn't that long ago. Right?

Unknown Speaker 54:14
Two years ago. Wow.

Scott Benner 54:15
See? You're doing a good job. So you started at a nine? You're down

Jaden 54:19
nine. I think it was a nine I'm not sure though. But my average sugar I know my average sugar like it's when we got my sister It was like 226 maybe and now and that was for like for three weeks or something. And now for like a month is on my average sugars like 171 60

Scott Benner 54:59
Wow. Good for you. You're bringing it down

Jaden 55:01
a couple a couple weeks ago, like the Mall of the month one, the month section was like 124. Wow. So like me and my mom, like we were really proud and stuff.

Scott Benner 55:15
I'm very proud of you as well. That's excellent. Tell your mom. I told her. She did a good job. And so are you. Yeah. Yeah, Listen, man, you're gonna keep doing that. So that number is going to keep as you learn more stuff. And you have more experiences, Bolus and things you'll get better at it. And the blood sugar will keep coming down, you'll start getting it more stable, there'll be less rollercoasters. And before you know it, you'll have an agency that you want. And it'll be easier and easier to do day after day, because you're gonna keep learning how to do it, the real, the real secret you already figured out which is to pay attention to it. And and now you're paying attention. I do have a question about the old you, you know, back in the day, I wondered try to understand taking food and on purpose not giving yourself insulin for what why does he can you explain why that happens or how it feels while you're doing it?

Jaden 56:11
I mean, thank you. If my friends were over, like, once my friends were over me, my best friend and his refers. We were playing on my sister's Xbox, cuz she told us we could. She was over at their sister's house. And the boys stayed here. She went over to their sisters. And so she gave us all permission to play on the Xbox, she put the oldest brother in charge. And so he we all took turns playing. And then my friend, which is the medium child, the medium kid added the free. They he went down and got a big bucket of pretzels cuz I mean, we I always liked the pretzels and stuff. So my mom buys them. And he went down and grabbed them. And so he was just eating some and I said, Please don't do this, please don't do this. And he came in with them. And I said, great. You did it. And so I just started eating them and stuff. And like, I kept saying No, Mr. Self, I'll give myself insulin after ate them. And then I fell asleep playing Xbox box. And my friend ended up finishing the bucket and just left it on the floor. And my mom walked in and she said, You ate all these things. And I said, order them to

Scott Benner 57:57
what stops you from giving yourself the insulin when you see the pretzels, like when you see the pretzels. What stops you from going, huh? I'm gonna have some pretzels. Button button button beep I'm gonna eat my pretzels now.

Jaden 58:09
I mean, it's just like when I'm hanging out with friends. And I know the right thing to do. I mean, I'm getting better at it now. But when I used to see friends and I knew the right thing to do, I would always want to try to avoid it. Because when I first got this, even today I I kind of I know everyone says and I know I am still a normal kid. But I'm just, it just to me doesn't feel like I am. It feels like I have this. And this makes me different from everyone else.

Scott Benner 58:48
Can I tell you? Yep, everybody's got something, man. You just don't see it all the time. Everybody has something they're thinking about something they're uncomfortable with something they don't want other people to see or they don't want to be bothered with. And the truth is, is that some people figure out how to deal with those things. And some people don't. But you're starting to figure it out. So my best advice to you would be Don't worry about what other people think. Right? And not as many people are looking at you as you think they are. Right. So it's hard to feel like that. But, you know, the truth is, everyone's got their own life. They don't care about you. You don't I mean, they're not worried about the stuff you're doing around pretzels. And it feels like that to you. It feels like everyone's looking they're gonna bring these pretzels in the room and I have to give myself insulin and no one else does. But the truth is, no one cares. Like, if you feel like they do or they're judging you, and if you and maybe you'll meet somebody one day who really is then that person is not a friend. You know what I mean? Like your friends would want you to be comfortable. they'd want you to be healthy. They wouldn't want to see you get DK or I ended up back in the hospital, they would want good things for you. And and you definitely need to want them for yourself. And Jaden, I gotta tell you, man, you have to worry about yourself. Okay? Your first, your health is first how you feel is first. And you're as normal as anybody, man. You're 100% as normal as anybody, everybody. Everybody's different. And there is no real normal. Like, I mean, what does that mean? Like? What is normal mean? Exactly? You don't I mean, like, for you normal means you have to Pre-Bolus your insulin before you eat. So don't feel weird about that. That's who you are, man. I think you're a great person, why not? Just go ahead and be you, you know?

Unknown Speaker 1:00:45
You know?

Jaden 1:00:47
And also, like, it kind of just bugs me when like, my friends ask, like, what are you doing stuff like, when they're concerned about me, I kind of just wish they would think of me how they used to like, I'm, like, just like, everyone, before I got this would I just not really pay attention to me and stuff, like only my friends, which are, like, there were a couple friends I had at school. And I mean, I was sick, there was a couple, but the only friends I would really talk to school is my neighbor. And my friend's sister. And that would be it. And they would be like, really the only people I would actually like hang out with, like, at recess and stuff. But I'm not saying that I have like no other friends besides them. But those are the people I really only talked to at recess and stuff. And like everyone else kind of avoided me. Everyone told them like, stuff about me and stuff wasn't true. And they just kind of avoided me. And they were like, a lot of them were jerks to me, and I kind of miss being treated like that. I don't miss being treated like a jerk. But I just kind of wish it was like that still. Because I instead of people always been like, caring to me and stuff. Like I like that. But it just seems like they're too worried and stuff.

Scott Benner 1:02:36
I understand. But I think the way to get past that might be for you to just accept that this is how it is and make it normal. Like you ever see somebody, this is going to be a weird example, to ever see somebody wearing clothes that are really strange and weird. And they look super normal and comfortable in them. Like it's their confidence that makes them look good. It's that they're not worried about how other people see them like people, some people just feel comfortable in their own skin. Like, do you know what I mean? Like they just they know who they are. And they're okay with it. And that feeling goes out to the people around you. And then you seem you seem like there's nothing to look at. You're just you're just the way you're supposed to be. And you're always the way you're supposed to be. But you're the one that will make it normal. It's not them. It's not the people on the outside that get to tell you how you feel. You tell them how you feel? And then they'll react that way. Does that make sense? Mm hmm. Yeah. And if you need somebody to treat you like a jerk, I'm sure your sister will do it.

Unknown Speaker 1:03:43
Every day.

Scott Benner 1:03:45
She's handling you don't worry, Jaden, you're doing terrific. It's definitely gonna get better. You're just at the very beginning of this, which is hard to see sometimes. But this is the very, very beginning of this. And as the months and years progress and you get older, you're gonna, you're gonna do really wonderful because you're and I'm telling you right now, man, I'm not going to tell you anything different than I would say to anyone else. If I was talking to an adult, that was three times your age, I would tell them. If they said what you just said, For the last hour, I would tell them, you're going to do well. I can tell. I've talked to a lot of people. And you have what everyone who does well has. And you know what that is? You're trying that really is the core of how people end up doing well with Type One Diabetes. They care. They're paying attention, and they're trying, and it just gets better when you do those things. You're doing it man, you're doing great. Plus you talk to your sister and Linda user Xbox sounds like you got a full supply of pretzels as long as you don't invite that kid over. And you're doing you're doing all right, you know? Yep, plus it. Now Ohio. I guess you Last LeBron, that sucks. But I mean, other than that, is it a decent place to live? Oh, yeah, yeah, you go, what, what, what would make things? Like what? What's your next goal for yourself with your diabetes?

Unknown Speaker 1:05:16
Oh,

Jaden 1:05:16
my next goal is to I'm sure, I mean, get down to at least 5.5 or 5.8 on a one. See?

Scott Benner 1:05:31
That's great. Tell me something about your Dexcom. Where is your high alarm set out? When does it tell you you're getting high?

Unknown Speaker 1:05:38
I think that's maybe 200. Okay, I'll

Scott Benner 1:05:41
tell you what, if you start if you listen to me, okay. Pre-Bolus your meals, right? Yeah, pay attention to the foods you're eating. Meaning, you know, understand that pretzels take a different amount of insulin maybe then grapes do or that, you know, just like you're doing pizza might need more attention than a salad does, right? Like that kind of stuff. Yeah, keep keep paying attention to that. And remember that as you're growing, your basil needs are going to go up. Okay, yeah. And so be kind of flexible. And remember to change your settings when your settings need to be changed. Don't look at your blood sugar for three weeks going, I don't understand why it won't come down. Like give yourself some more insulin where you need to pay attention to how you're growing, keep doing what you're doing, you're going to get that a one C and the fives you absolutely well, and keep an end, as you're doing that have a goal of getting your high alarm on your Dexcom down to 140 by the end of the year. Okay, so the reasoning for that is, if you don't let your blood sugar get high, it won't be high. So when your blood sugar gets to 200, and it beeps, you're like, my blood sugar's 200, then you have to give yourself some insulin right? And you have to give yourself a fair amount to get it to come down. And sometimes you give yourself too much and you get low. But if your Dexcom were to tell you, oh, my blood sugar's 130. The amount, excuse me, you're the first episode I've done this year, I'm not used to talking the the amount of insulin that you would need to make a 130 into a 90 is much less than the amount of insulin, you'd need to make a 200 into a 90. So in short, the sooner you know, your blood sugars going up, the sooner you can do something about it. And when you do something about it at a lower number, you use less insulin. And by using less insulin, you're less likely to cause a low later, and that's where you start making stability. Does that make sense? Yep. All right, man. You're doing Oh, and if

Jaden 1:07:50
if you hear that noise, that's my sister opening up. Closing the garage door. She just

Scott Benner 1:07:56
don't worry about it. It's all good, man. We're done. Anyway. So is there anything left to say that you that you want to say that we haven't talked about?

Unknown Speaker 1:08:03
Um,

Unknown Speaker 1:08:05
I don't think so. I

Unknown Speaker 1:08:06
mean,

Jaden 1:08:07
I've not I know. I'm not really able to just sit down on the floor and talk to someone for about an hour by Phil enjoyed this.

Scott Benner 1:08:15
Well, Jen, I enjoyed it, too. And you did a really great job. Like, seriously, your stories were good. You're thoughtful about how you feel, even though you might not realize that because you're 11 I thought you were really insightful. And I thought you shared a lot of valuable information that other people are going to do. Do well to listen. So. You did exactly what you meant to do, man. Congratulations. Yeah. Good for you. Is it feel weird now that we did it? Yeah. Was it weird? Like you were nervous? Like sometimes you would text me and be like, you'd be like it we're recording and like three weeks? And I'd be like, what is this? I look nice. Jaden. I'm like we are. And were you like nervous as it was coming up or now cuz you did it? Yeah,

Jaden 1:08:56
I was. My mom and dad kept telling me to write like something up like and say, but I kept forgetting. And I'm like,

Unknown Speaker 1:09:06
I don't know what I'm gonna say.

Scott Benner 1:09:08
You did a really good job. And you're Let's remind people as you're going out, you're 11 right? Yeah, yeah. Did you did a great job. Are you kidding me? This was fantastic. I can't believe you were even nervous. You're good at this. And you didn't write anything? Right. We just talked. Oh, I'm great at this. You don't have to worry. I'll take you right through it. I thought we did good here. What do you think we should call the episode?

Unknown Speaker 1:09:34
Um,

Unknown Speaker 1:09:36
I don't know.

Scott Benner 1:09:37
It's hard to pick the titles. But I'll figure it you know

Jaden 1:09:42
what, just for the fun of it. Name it pinky pain, gay.

Scott Benner 1:09:45
I really might make a piggy pancake in case you're like that is really where I was at on that too. Okay, all right. I that might be what I do Jaden. I I really very well may do that. Alright, listen, man. Tell your mom I said Thanks so much for helping get us set up. And I think you're doing terrific. I really do. I wouldn't lie to you. And I think you need to keep doing what you're doing. You know, pay attention here in some of the way we talked about just now. And you you're on your way to doing something really great. I'm proud of you. You came a really long way through a lot of can we can we curse at the end? Jaden? Do you ever curse in Ohio?

Unknown Speaker 1:10:26
Well,

Unknown Speaker 1:10:26
no, I mean, should I Christians, but to Christians, not curse? I mean,

Scott Benner 1:10:34
do we not admit that we curse? Is that the play? Is that how we do it? I don't know. You don't know. Do you ever hear any wrappers around the house?

Unknown Speaker 1:10:42
No, no, really? All right. Well,

Unknown Speaker 1:10:44
my sister.

Unknown Speaker 1:10:46
Do you ever?

Unknown Speaker 1:10:48
Um, if I'm mad?

Scott Benner 1:10:49
Yeah. What's your go to curse? I won't. I'll bleep it out so people can hear. What is it? Ah,

Unknown Speaker 1:10:56
I honestly don't know. I think

Scott Benner 1:11:00
when you get mad you do though.

Unknown Speaker 1:11:02
Uh, yeah. Yeah. Probably. Probably.

Scott Benner 1:11:07
Yeah, it's a good one. Descriptive makes a point. But like, you stub your toe, you

Jaden 1:11:14
know? Oh, no, no, no. I mean, I don't scream a fight. Like, I don't get like say that. If I stub my toe or anything. They're just mad at someone.

Scott Benner 1:11:26
What about when you're walking down the stairs, and you drop something? And you What do you say?

Unknown Speaker 1:11:32
I just say crap.

Unknown Speaker 1:11:33
Yeah, I like and my dad might

Unknown Speaker 1:11:37
also just get mad at me for saying

Unknown Speaker 1:11:41
he doesn't like,

Jaden 1:11:42
Yeah, he doesn't like us using any words that could be like, anywhere close to being the customer. Like no replacement.

Scott Benner 1:11:52
Oh my God. He would not like it here then. I curse like all day long. Jaden. If If I curse on this podcast as much as I curse in my real life. I gotta tell you, I love cursing. I really do. But say that. We heard. What's that?

Unknown Speaker 1:12:09
You're weird?

Scott Benner 1:12:10
Weird. All right. I'm not telling you my favorite curse word. I think it'll kill you.

You were really great, man. This was excellent. Be proud of yourself. You did a wonderful job.

Unknown Speaker 1:12:24
Oh, okay.

Scott Benner 1:12:26
All right. I hope you have a good day. I hope you'll learn something. Yeah. And please tell your family I said hello. And thank you sister for wearing the sweatshirt for the podcast. All right. Okay, see ya. All right, brother. Take care.

Unknown Speaker 1:12:39
You too. Bye.

Scott Benner 1:12:46
Well, first, I'd like to thank Jaden and his family for allowing him to come on the show and for wanting to and for his incredible and honest portrayal of his life. And its type one diabetes, the show wouldn't be possible without the sponsors. So if you're looking for an insulin pump, check out the Omni pod tubeless insulin pump. If you'd like to see your blood sugars in real time, get a continuous glucose monitor and consider getting the Dexcom g six touched by type one does amazing things for people with type one diabetes. And all they would like is for you to check them out. Jeeva hypo pain is the glucagon that my daughter carries. And of course we love the Contour Next One blood glucose meter for its accuracy and ease of use. There are links right in the shownotes of your podcast player and at Juicebox podcast.com for each and every one of the advertisers. If you have the need, please consider supporting them through my links. Last but not least, the T one D exchange isn't simple and easy way for you to support Type One Diabetes Research and the podcast. The T one D exchange is looking for type one adults and type one caregivers who are us residents to participate in a quick survey that can be completed in just a few minutes from your phone or computer. After you finish the questions you will be contacted annually to update your information if necessary. And to be asked further questions. This is 100% anonymous, HIPAA compliant and does not require you to ever see a doctor or go to a remote site. Every time someone completes the process using T one d exchange.org. forward slash Juicebox Podcast benefits. So if you're looking for a way to help T one D research, the podcast or both, nothing could be easier or more beneficial. After you go to T one D exchange with my link, click on join our registry now. And after that you just complete a simple survey. I've done it for Arden. It only took me a few minutes. Past participants like you have helped to bring increased coverage for test strips, Medicare coverage for CGM, and they've also helped to change the ADA guideline for pediatric Awan seagulls. It's exciting to Imagine what your participation may lead to T one d exchange.org. forward slash juicebox.


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#428 Culture of Helping

Scott Benner

Utah Adrianna

Adrianna is a young mother who lives with type 1 diabetes.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or their favorite podcast app.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Unknown Speaker 0:00
Are you checking her blood sugar?

Adriana 0:02
My insulin pump just well expired this morning. So I was just putting him back on. I can stop for a second.

Scott Benner 0:11
Don't stop, you're fine. It's a podcast about type one diabetes. If we can't let somebody put on an insulin pump during this, I don't know where in the world you'd be able to do it. The absolute place to do it, so talk me through what's going on while it happened. So you're pumped just expired it it just aged out.

Adriana 0:29
Well expired. Earlier this morning. I was half asleep, and then I didn't even realize it. But I took off my pump. Like off my body. I woke up and I was on my nightstand. So somehow in the middle of the night, because sometimes it'll just expire and I turn off the PDM. Okay, but I actually like ripped it off my body last night and it was like I'm sick of this. Yeah.

Scott Benner 0:54
So that way you did this in your sleep?

Adriana 0:57
Yeah, I am. I'm a pretty heavy sleeper.

Scott Benner 1:03
Alright, let's start over. How are we gonna refer to you? So since we're recording already?

Adriana 1:09
Oh, okay. Um, well, I'm Adriana and I live in good old Utah, and I've been diabetic for only six years. So I was I was 18 when I got diagnosed.

Scott Benner 1:34
Hello, friends, and welcome to Episode 428 of the Juicebox Podcast today proving that in fact, the Juicebox Podcast is the number one type one diabetes podcasts in Utah, another guest from the great state of Utah. She's got a great story to please remember, while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. or becoming bold with insulin. You know, I've never been to Utah. I might have to go. I think I would be treated like a I don't know exactly. I feel like there would be like a red carpet. And someone would bring flowers to the airport. Utah. I love you. And I have no idea why so many people from your state. Listen to this show. I'm gonna figure it out one day. Does Adriana have the answer? Maybe. Anyway, I really want to call this episode Utah, Adriana. But I don't know if I'm going to do that in

today's episode of The Juicebox Podcast is sponsored by touched by type one. They're an amazing organization, doing incredible work for people living with type one diabetes, and you should check them out. They're on Instagram and Facebook. And of course, at touched by type one. org. The episode is also sponsored by the Dexcom g six continuous glucose monitor. If you're using insulin, you need to see what your blood sugar is doing. dexcom.com forward slash juice box, you'll be able to find out more. And of course to get that free, no obligation demo of the Omni pod tubeless insulin pump. All you have to do is go to my Omni pod comm Ford slash juice box. Alright, let's get away from the diabetes for a second. Have you committed any major crimes in your sleep? Anything like there's no bank robber being looked for in your town and no one can figure it out. But you have a Lamborghini and you're not sure how you got it either. Nothing like that.

Unknown Speaker 3:53
No, no, no.

Scott Benner 3:54
I know. So that's interesting. So So tell me something you weren't wearing a pump for a while. Did your blood sugar go up? significantly?

Adriana 4:03
Yeah, yeah, I definitely woke up. I I'll wake up with my blood sugar gets pretty high too. And obviously the Good morning. You know, you have to go use the restroom or I if I wake up thirsty. I'm like, Oh, no. Where's my blood sugar out? And, and then I have Dexcom as well. And so that beeps at me. But my husband usually is more diligent at saying Hey, your sugar's high. Hey, cuz he follows me on Dexcom and he's like, you probably should put on the new pump. But, um, but yeah, so maybe not my best night as a diabetic, but

Scott Benner 4:46
we're gonna get into why you're haphazard with your hair later. But you just said your husband, and you've had diabetes for six years and you were diagnosed when you're 18. And so any and I mean Any knowledgeable listener of the podcast has just said to themselves. Oh my god, there's another Mormon on the podcast. Right? Am I right?

Unknown Speaker 5:09
Yeah.

Scott Benner 5:11
How is that I ask everyone, everyone that comes on who ends up being a Mormon? Because I don't double check on your, your religious beliefs before you go on the show. why in the hell is this podcast so popular in the Mormon community, you need to tell me somebody is eventually gonna tell me there's the news, like, Am I on a message board somewhere? Or?

Adriana 5:33
Um, you know, I actually heard of your podcasts when I. So here's maybe another stereotype. I'm Mormon, I'm an I already have a kid, just one. But

Scott Benner 5:46
please, you're not even Mormon, you have one kid, you need like six.

Adriana 5:50
But I was at an ultrasound for, for when I was pregnant. And the radiology tech told me, you know, found out I was type one. And because I was in the fetal medicine, and she said, Oh, you got to listen to this. So it was really just word of mouth that I heard, because I've never heard of your podcast before. And at that point, I had been diabetic for maybe four years.

Scott Benner 6:19
Okay. Was she part of the church?

Unknown Speaker 6:23
I don't know.

Unknown Speaker 6:24
I didn't ask her you have to find out from what

Scott Benner 6:26
I mean. I'm not saying like, hang up and call. But at some point in your life, if you could just take your drive and find like, that's the place I got my ultrasound, let me just duck in real quick. And check. You know, you could probably just check her underwear to say, and then you'd be able to figure it out, right? And tell me because I'm dying to know, like, Listen, honestly, as I joke about this, there's been like, 350 episodes of the podcast, I believe, like, maybe eight guests have, you know, have been from the Church of Jesus Christ of Latter Day Saints somehow, but and I'm sure I probably had on 7000 Catholics, and I don't realize it or anything like that. It's just such a, it's interesting, because you talk to them more. I know, not every Mormon lives in Utah, but I'm just gonna make a lot of generalizations that you can just correct me on at any point if you want. But it's not a densely populated place. And so like it, it stands to reason that somehow the podcast is being passed about within there. And I'm just I'm trying to find out how and so I asked everyone, you didn't help me? It's fine. We'll figure it out? Well,

Adriana 7:30
well, let me tell you this, I think especially, maybe it's not even religious, but it's just more the Utah culture is that we, that really, we do try to help each other out, you know, just neighbors, being neighbors and helping each other out. And really just we want that supporting. I know, there's, I'm already a part of multiple Facebook groups that are just a part of Utah for type one, and, and so it's an any, I think, maybe this isn't just Utah two, but any diabetic I need. I'm like, oh, we're on medically best friends. And we start talking about, you know, just the typical day to day things, because we can relate. And I think that's maybe why is that we get to hear perspectives and say, because when I was first listening to you, I'm like, Oh, my gosh, I get that and understand. It's like, I can relate. And even though I can talk to my husband about this, and he lives it day to day with me, but it's just different. hearing it from somebody else.

Scott Benner 8:38
No, I understand that. And so you feel like maybe you just happen to live in a community that that prizes, the idea of personal interactions and sharing what works with one person with another person. Just that kind of an idea.

Unknown Speaker 8:51
Yeah, that's excellent. All right,

Scott Benner 8:53
be my best. Listen, you I have to be honest with you. That is so far, thusly. The best interpretation of why it is. And most people are just like, what, I don't know. But you actually had like a thought. Alright, that makes us interesting. Okay, good. diagnosed at 18. You and I know this is great. I grew up in the religion or married into it.

Adriana 9:17
I grew up but I almost kind of hate saying that too. Because then people think, oh, you're like a blind follower. But I grew up but of course, I had my teenage years and, you know, rebellion and and stuff. And I, I've found the church for myself to be true. Cool. All

Scott Benner 9:35
right. I was just wondering how like, at what age do you start, you know, talking to your uterus and being like, Listen, it's gonna be you and me. It's gonna be tough at times. We're going to ask a lot of you, you're probably not going to be worth crap by the time I'm done with you. Just so you know. And but we're gonna get our mileage out of you and you are really, really going to do your work here. I didn't know if you had personal conversations with it or not. I would I'd be like, Listen, we got business. I don't know. But do you have that? Like how many brothers and sisters do you have?

Adriana 10:06
I just have one younger brother.

Scott Benner 10:09
He's ruining my. I am trying to set up a narrative here. Damn it and you are just ruining it. I'm just kidding. I'm totally.

Unknown Speaker 10:20
I totally get it.

Scott Benner 10:21
We've gone way too far into prognosticating that uterus is gonna get beat up. So let's just keep moving. What What is your hold your baby? What's her name?

Adriana 10:32
So I have a little boy, his name's Ellen. And he's about 16 months. And so he is walking and not quite using all of his words, but he is jabbering away all the time. And it's just, it's awesome. I really love this age, because I can actually, like, play with him now. You know, he can walk around and everything's exciting. And it's just, he's seeing the world for the first time. And that's, it's really fun.

Scott Benner 11:01
I agree. I completely agree. And it is a terrific, it is an absolutely terrific age. You know, in the beginning, they're just sort of like, their furniture, you move around, and it poops like so then, you know, eventually you start like, Oh, look, it's doing something and then they move and then they have their personalities start to develop. It's a wonderful time you get to stay with him all day.

Adriana 11:22
No, I actually. So I work as a medical assistant, I work in a family practice clinic, and but I only work three days a week. Um, and so yeah, so it's not too bad. I feel like and I've been working for about a year or so. And after maternity leave, and it's, it seems like the perfect kind of balance, you know, three days at work, and then I get four days at home. And so it works out that way.

Scott Benner 11:53
Excellent. Now, that's great. I'm happy for you. I really am. And it's right here us we're filling the pod and getting everything going again, where did your blood sugar? Do you have a feeling for how long you were without insulin?

Adriana 12:06
i'm john, I think I was probably maybe three hours or so.

Scott Benner 12:13
What do you think about sugar? Got to?

Adriana 12:16
Oh, I know. Because I checked my Dexcom and I was up in like the 330s or something. And so that's definitely a little too high for me. Yeah. Um, but Well,

Scott Benner 12:28
let me let me find out a little bit about how you like manage, like, what it is that you feel like your goals are and how important they are to like, you know, I mean, like, everybody has a different focus for their desires about their diabetes. So what do you what do you aim for? Like, what's your goal, day to day? Um,

Adriana 12:46
well, because you can set your own ranges on the Dexcom I have mine between 70 and 150. Usually, so I was like, double where I want to be. Mainly because, you know, as Owens getting older, we are, like thinking about starting to have more and and so I want to bring my sugars back down. So I can have that, that good control before I get pregnant again. But after I had Oh, and I was like, because during pregnancy hormones, just make it crazy. Make your blood sugar crazy. And so it after I had him, I was like, Oh, it's just me, I'm not taking care of somebody else inside of me. And so I kind of let go for a while. And so the last like, couple months, I'm like, Kay, let's bring it back in and get that take control. Again.

Scott Benner 13:41
Jenny Smith and I just recorded yesterday, a pro tip about a pro tip episode about pregnancy. And that was one of the things we spoke about is that after you have the baby and all the things that can come with that you can have postpartum you could just be tired, you could just be busy, that kid might not sleep, you know, all this stuff. And what's the easiest thing to cut away when you're looking for time, and it often ends up being yourself which is, you know, of course, terrible on any level. But when it's around your diabetes, it's, I guess it's a little worse, honestly. So you were just like, Alright, I'm gonna pull this back the what are the first steps in pulling it back together?

Unknown Speaker 14:22
Um,

Adriana 14:23
well, mainly, me and my husband try to eat pretty healthy. So we try to we try to really meal prep better and just focus on what we're eating. And I actually have a friend who's a registered dietitian, and so I was getting consults from her as well and and really trying to set those alarms so I checked my blood sugar, you know, or give insulin before meals because oftentimes, I'm ready to eat and I'm like, Oh, I didn't give it Bolus any before and but Or there's even been times because at work, it can be so, so busy that I actually actually forgot to give insulin before I even ate. And so I had my meal and I was back at my desk and I'm like, Oh, I got my alarm that my, my sugar was going up like, Oh, well, I need to get some insulin in me now. But, um,

Scott Benner 15:22
where does this usually lead you to? For? Like long term results? You have a, you know, where you're a one sees usually sit, would you be willing to share?

Adriana 15:31
Um, yeah, I'm, I'm due again for my agency. But like three months ago, I was 6.8.

Unknown Speaker 15:40
Excellent. So that's wonderful.

Unknown Speaker 15:42
Yeah,

Adriana 15:42
I feel pretty good about it there. But still, I'd like to see it a little lower

Scott Benner 15:46
here. But you know, it's still it's very respectable, at the at the, you know, at the very least, and you're talking about healthier foods. And there's a difference between healthy whatever that ends up meaning and impactful on your blood sugar, which is, is sometimes people get confused about, I think they're like, I don't understand what's going on, I eat this very healthy thing. It doesn't mean it doesn't have, you know, an impact on your blood sugar. So are you did you go lower carb? Or are you cut out junk? Or like, what was the, like, when you look in the kitchen, you were like, one thing needs to leave here? What was it?

Adriana 16:27
Oh, it was more. I have a very sweet tooth. And I maybe say, too many jokes about that. You know, I'm like, Oh, I'm diabetic. So of course, I'm sweet. And I need to eat that cookie or something. But, um,

Unknown Speaker 16:44
but yeah, it

Adriana 16:44
was mainly kind of cutting out junk. You know, of course, I don't need as many sweets as I want during the day. And but yeah, a lot of the health, like, the nurse practitioner that I work for she recommends the Mediterranean Mediterranean diet. And, of course, that's a lot of carbs. Because they try to cut out meat or that not protein, but more animal based meats.

Unknown Speaker 17:17
And so a lot of

Scott Benner 17:19
a lot of those plants have carbs in them. And yeah, and everything that falls into that? Well, I just say that. I think if you know how to use your insulin, you could do that easily. That's not a problem. I mean, you're able to see six, eight. So it's not like you're not lost, you're doing great. And I don't know that, you know, you know, if somebody wanted to be low carb, I don't, I don't see a problem with that either. And even if I did see a problem with that, I don't think I would say I think it's everyone's business to eat the way they want to eat. But you're you've already touched on the things that really make a difference. are the things that are sort of, you know, nebulous, it's the remembering to Pre-Bolus or not getting busy at work, and that and it happens to everybody, like I don't know, anyone, I don't know, anyone who doesn't just one day, grab their food, sit down and go, Oh, you know what, I have diabetes I should have for my kids guy forgot about that, you know, it just really does. And one day, you're gonna have 23 kids, and it's gonna be harder to remember. So we have to find a system for you. That's going to help. And, but but you really are interesting, because you're two people. To me. You're, you know, an adult married person with a child. And you're still also just in your mid 20s. And I remember myself in my mid 20s. And I mean, I had a kid too, but I was pretty much an idiot. You know, I didn't really know what I was doing yet. I actually was lamenting the other day. I'm 48. I don't even know 100% know if I've grown up yet. To be perfectly. Like I think I might be a man in like seven more years is what I'm hoping

Adriana 18:55
my father in law says if you don't grow up by the time you're 50, you don't have to

Unknown Speaker 18:59
so Oh, really? You got

Adriana 19:00
a couple more years? Yeah.

Scott Benner 19:02
Let's wait two more years, I can just let this whole thing go. You're saying? What do you think? What do you think he means by that? Like, people have accepted you now and they're not looking for real growth from you? Or it's working, so don't worry about it.

Adriana 19:14
Maybe I'll leave the interpretation up to him.

Scott Benner 19:17
Yeah, I'm leaving it up to me. I'm saying these people are stuck with me. They've stuck with me this they're not gonna bail now. Like, do you think I'm gonna look up divorce rates after 50 for first marriages, maybe? Maybe you're right, maybe people are just like, ah, too much trouble to move the desk. I'm staying. Yeah, so I was gonna say can you tell me a little bit about your diagnosis at a team where you just out of high school or were you still in?

Adriana 19:46
Yeah, um, I was in my first year of college. And I you know, college food is super great. Just Top Ramen, peanut butter and jelly. Lots of cars. And I was moved down to Southern Utah. And so it was really hot. And I was drinking water all the time. And I just thought it was because I was in a new place. Um, but I, the interesting thing is I didn't lose a significant amount of weight. At least, that I noticed, you know, I wasn't in the hospital, crazy. I came home. And I decided that I was going to serve a mission for, you know, the Church of Jesus Christ of Latter Day Saints. And so you have to do like a, we call it a mission physical, but it's just a physical with your doctor. And they found sugar in my urine. And they, they thought that I was type two at the time. And I have working in a medical clinic, I don't know, what was going on what they were seeing. Because now that I know and where I help other patients and things I'm like, Well, why didn't anyone second guessed this because they thought I was type two, and put me on Metformin for a little over a year. And my sugars just weren't getting any better. And I got, they told me I was diagnosed with mono at one point. But I think I was going into more of DK. And finally, I got a second opinion. And she did the antibody test for me. And then type one ever since.

Scott Benner 21:37
Yeah, it's so surprising, isn't it? Because Metformin should impact a person with type two more quickly than a year like it shouldn't take someone a year to go ha, this still isn't working? It really just it shouldn't. And that's sucks. And it even goes to show a person like yourself who works in the situation that you do can still be moved by what the doctor is telling you like, I mean, why would you? Even if you kind of doubted in your heart, you can't, it's hard to break away right from the doctor telling you Hey, you have type two diabetes? Like why would you just believe that? I guess? And what happened? What happened at the end of that year that made somebody go like this isn't working? What was the next step to figuring out you were type one?

Adriana 22:21
Well, no. So that second opinion, I got my primary care who diagnosed me as type two ended up moving away. And so I had to go, I was, you know, basically forced to go to a new physician, which I didn't mind. And he was just looking at all of my symptoms. And my history is like, this doesn't add up. Because I wasn't working, I was still going to school and getting into my program at that point. And so I wasn't a good enough advocate for myself, either, simply because I wasn't aware. But thankfully, this new physician second guessed it and said we need to do more blood work. And was surprised that we didn't do the antibody tests right off the bat, either. But, um, but yeah, so

Scott Benner 23:14
how did it feel at 18 to be told you had type two diabetes? Was it in your family like, did that? Was it not surprising where you're like, Oh, that makes sense. Everybody has type two in my family, or how did that? No, no,

Adriana 23:26
no one on either side of my family has diabetes. Later, when I was diagnosed type one, then we found out that my grandpa had pancreatic cancer, which of course has, you know, red flags in the back of my mind, but but no one has type one or type two diabetes on either side of my family. And so it was just strange. And in, I didn't eat super well in college, because I don't feel like maybe anyone does, especially freshman year, but so I was like, Okay, I thought maybe, okay, it's just diet. I can do this. I can change. But as I was learning more about diabetes to in my health classes, I'm like, something's, something's not right. And so, thankfully, between that and the doctor, we were able to, but it just, it was hard. Especially poking. I didn't know about Dexcom and I was poking my fingers all the time. It was just it was hard.

Scott Benner 24:41
Well, I think since Adriana is talking about Dexcom, we should just jump right into the advertisement for them. If you're using insulin, your blood sugar may vacillate, it might go up and down and feel at times like there's just no rhyme or reason for it. But when you use a Dexcom GE six continuous glucose monitor, you can begin to see trends, you can begin to understand how different foods and insulin impacts your blood sugar. And then you can make adjustments to stop those impacts from being well, so impactful on your life. I wish I had something more clever to say than that. But you start to learn when to use the insulin, how much you need, what foods impact your blood sugar's, and from there, things just sort of open up. Dexcom offers alarms, alerts, beeping, you call it what you will. But you get to decide where it happens. My daughter's are at 70 and 120, we get a alarm when my daughter goes below 70. And when she goes above 120, you can set your own range and make your own decisions. Dexcom gives you that kind of freedom. And you can share if you'd like your blood sugar's with up to 10 followers, and this is on Android, or iPhone, you really, really, really have to check it out dexcom.com forward slash juice box, the information that we get back from ardens Dexcom g six is at the core of every decision that gets made about type one diabetes. My daughter's day one C has been between five, two and six for over six years. And while those are, you know, the results that we have, and yours may vary, I really think that the information you get back is valuable when you're using a Dexcom. And as a statement of fact, I really don't think we could have those results, especially with no diet restrictions. Without the Dexcom g six. The Omni pod tubeless insulin pump is just that an insulin pump without tubing. The Omni pod has nothing for you to get caught on a dresser drawer handle a doorknob. And you know, you don't have to take it off to go swimming or take a shower. So you're always getting that basal insulin that you need. The only pod is discreet and easy to place in ways that won't be so obvious to others. But at the same time, if you don't care if someone sees your insulin pump, you can wear it loud and proud. It really is up to you. My daughter has been wearing an omni pod since she was four years old, and she is 16. Now she's been wearing one every day for all of those years. And the Omni pod has been a true friend through this journey with Type One Diabetes. The best part about Omni pod is that they offer a free, no obligation demo, which means you don't really have to, you know, even believe me if you don't want to, all you have to do is go to my Omni pod.com forward slash juicebox and Omni pod will send you out a demo, you can try it on it and wear it and see what you think for yourself. In the end, they want you to make a decision that is best for you, you get that demo and you don't like it. It's okay. But if you love it, it's super simple to keep going with the process and get yourself a nominee pod just like Ardennes. So check out dexcom@dexcom.com forward slash juicebox. Get that on the pod, no obligation demo at my Omni pod.com forward slash juicebox. And of course, don't forget to check out touched by type one at touched by type one.org and find them on Instagram and Facebook. right there's a lot more to come with Adriana. Let's get back to it.

I mean, it would be bad enough at 18 to be told you have type one diabetes, but to have something that I think people generally think of as being an older person's issue. Right? I know it's not the case. But still it would feel like that in the moment. You know, like, wow, this isn't like this doesn't happen to 18 year old people. And I just can't imagine that being just difficult to understand and really confusing. How did your parents do? Like, was it just one of those things where you're like, Alright, well, she has this and they gave her pills, and they made sure you took them? Or was there? Like, like, was there a lot of conversation around it? How did it? How did that work in that first year.

Adriana 29:22
More My dad was in the hospital quite a bit so that he was kind of my motivator to become have my career be in medical. And so and I was 18 I was going to college I had moved out I I was an adult at that point. And so my parents were there to support me and love me and help me in any way they could. But it was it was kind of my, you know, trial and my thing to go through. And so they wouldn't say did you take your pill today or you know, have you checked your Sugar, but they were there if I ever needed something or if I had questions and I could come to them, but

Scott Benner 30:08
were you away at school? Or were you living at home and commuting?

Adriana 30:13
Um, no. So I live in northern Utah. So it's, it's a six hour drive down to the school that I went to.

Scott Benner 30:20
Gotcha. So they weren't even. Yeah, I mean, listen, that makes sense. The your dad had like, chronic issues, that stuff he was dealing with.

Adriana 30:29
Yeah, yeah. So he has had his own chronic issues. And, and yeah, so they, of course, just like any Mom, I, you know, I'd call her and talk to her. And she would ask how I'm doing and, but eventually that summer, so I got diagnosed, like in December, but I went back to school for the rest of the spring and came back in the summer. And and so they were maybe a little bit more helpful, like to remind me say, Oh, well, did you check your sugar? But, um, but really, it was all up on me? Yeah,

Scott Benner 31:04
no, I mean, listen, it's a unfortunate moment. Right? Like, right? Is it like, you're in college, you're just not home anymore, like, even a year and a half sooner, you would have been around them more often? Who knows what they would have seen? You know, it's, I mean, you'll know now, and you probably have figured it out over the last 16 months, but you're really paying attention to your kids. When you're a parent, you're like, oh, something changed, or, you know, a lot of that going on. But, yeah, I mean, it worked out right, in a year. So when you find out that you're type one, how does that change things for you? Was it a relief?

Unknown Speaker 31:38
Or

Adriana 31:40
I feel like it's hard to say it's a relief, because, you know, everything you read on type one, there's, there's no cure. You know, you're you have to have for the rest of your life. But type two, I was like, Okay, I can fix this, I can get better. And then I was told I'm type one, and it was

Scott Benner 31:59
felt like something you couldn't fix anymore.

Adriana 32:01
Yeah, I couldn't fix it. And, but it didn't get me down. I was like, Okay, I can deal with this. And by that point, I actually had already married my husband, Chris. And so I was married. And then just a couple months later, they diagnosed me as type one, which then brought on a whole lot of other emotions, like, I felt almost kind of guilty for Chris. Because then there's this huge financial thing with insulin and insulin pumps and doctor appointments. And and I'm like, Oh, you didn't get to really know about this. You just, you know, it just happened. But of course, he has been my, my best supporter through all of it. And he has been amazing. But for me to bring that it, you know, I it makes me feel a little guilty. Yeah.

Scott Benner 33:05
Yeah. It's, uh, you feel like you feel like you brought an extra burden on to an early relationship? Is

Unknown Speaker 33:10
that it? Yeah, that's exactly.

Scott Benner 33:14
Well, I mean, I couldn't be hard to disagree with how you feel I could see feeling the same way. And I've heard and talked to a lot of people who feel that way. I mean, the only thing I could say is that, you know, if he doesn't feel that way, and you guys are discussing it, and you know, in it together, it's, it's not going to be, you know, a burden. It'll just be it'll just be another thing, like, you know, call a call diabetes. Somebody Jenny told me the other day, she thinks of diabetes as a toddler, that just that never grows up. Maybe it'll just be that like something you always kind of have to fuss with a little bit and needs help and can't quite take care of itself, etc.

Unknown Speaker 33:52
Yeah.

Scott Benner 33:53
Have you ever asked him? Is he does he feel burdened by it?

Does he feel burdened by it?

Adriana 34:07
I've asked him before and he's like, well, it's, it's just what it is. And if it wasn't diabetes, then we would most likely have something else to have to work through. Because marriage isn't easy. And but it's something to work through and to. And so I just really locked out

Scott Benner 34:28
a guy. That's excellent.

Adriana 34:30
Yeah. Yeah. And he, he himself is going into school for nutrition too. So he helps me out that way. And it's, it was just kind of great. That I found him.

Scott Benner 34:44
Good for you. Did you meet him in in high school or college?

Adriana 34:48
No, um, I actually, I actually met him online. I met him through a dating app and Funny enough, his brother in law met his wife through the same dating app too. And

Scott Benner 35:07
please tell me there's a Mormon dating app the rest of us aren't aware of.

Adriana 35:11
Is there actually is. We didn't meet on that one. I would have used that one. But I know

Scott Benner 35:18
j date does j dates. So I'm asking you like you would know that was that's for Jewish signals. I wonder if that still exists. I'm looking it up as I cheat. Ajay date still exists. JD calm. Okay. So yeah, you know, that's makes sense to you. You met him? All right, what grabs you first, when you're meeting somebody like that? Is it a photo or something? They said, and then what do you do next? Do you text or call? How does that all work? I'm very old. So none of this will make sense to me. But explain it to me anyway.

Adriana 35:50
Yeah, so there's, you know, obviously, there's a profile picture and but then, like, kind of like Instagram, you can kind of look through a couple. And then usually there's a short little profile, and they can say whatever they want there. And but the interesting thing that caught me to Chris, is that because most of these guys are like, like muscle pictures, and you know, trying to show off, and Chris had a quote, an inspirational quote, as his first picture. And I thought, Oh, my gosh, he was this weird he, and, and then we just started talking. And of course, he had a picture of himself later, but he made a point to have like an inspirational quote first. And as we continue to talk, then, you know, I could just kind of feel that we were that he was genuine. And so it was really more so through conversation is how I looked at it, but

Scott Benner 36:51
Well, that's lovely. And so he didn't do something corny, and are trying to show you his guns, right. Like he was just like, look at my look at my biceps. Pick me Pick me. Now, when you get a hold, like when you when you, I don't know, either you swipe or you click or you do something? And does it start as a texting, I know it has nothing to do with diabetes, but this is just texting, and then you decide if you want to call.

Adriana 37:14
Um, so. So I'll be honest, the app was Tinder that we were on. So that's the one that people always joke like, swipe right on our left. And so you both have to swipe right. I believe it's been forever. But you both have to accept that, Oh, I like this person. Hopefully, they'll say I like you too, and make sense. And then it sets up like this chat within the group in the text or, sorry, the app. And then from there, if the conversation goes, then you can either meet up or give them your number or,

Scott Benner 37:47
you know, it'd be more of a competitive Bloodsport, if not, if both people didn't have to agree. It was just one like I agree. And the other ones like I don't like too bad. You have to talk to me now. And then we started. You got on the app, it's your fault. Strange conversations with people you don't like. But that's, that's really cool. How does that make it feel? We'll see you. I'm interested, honestly, because you're in a very specific age range that doesn't feel impersonal to you. Right? That feels normal.

Unknown Speaker 38:19
To sorry, explain

Scott Benner 38:20
your question to meet someone digitally doesn't seem impersonal to you. Is, am I right? To say that? I'm not saying it is I'm saying it doesn't strike you that way. Um,

Adriana 38:35
I had enough conversations on there. But you can, of course, online is can be a scary world, but with, you know, with limits, and now I didn't feel like it was impersonal. I felt like I've had pretty good conversations through there. But of course, you know, you have to be safe online.

Scott Benner 39:00
No, no, yeah. 100%. I just, it's a very, like, understand that. When I was 1918 1920 years old, like I had to go somewhere in public see a group of people choose a person that I thought was attractive, and then wander over to them to find out that they did not care for me in the least bit. Like that hadn't happened right in front of them. They had to like you had to watch someone's face go. Ooh, really? No. Why would you think that? I would, oh, sorry, excuse to walk away. Right. Like that had to happen. And it had to happen to you a lot. Before. You know, some people be like, Hey, cool. Let's you know, I'll keep talking to you. So anyway, I can remember anyone over a certain age is listening right now is like yeah, there's nothing quite like being turned down face to face.

Adriana 39:51
Oh, yeah. And let me tell you, I've definitely had plenty of those too. But I I started using the app when I came Back home. All my friends were still at college or, you know, out, they were out on their own LDS missions. And so there wasn't that, at least from what I could find wasn't really that dating group available to me when I was home, so, so yeah, but yeah, I'd much rather than in person but that's kind of just how it went. And you know, I'm grateful for it.

Scott Benner 40:28
That's it seemed I mean, obviously worked out really well. It's, it's cool. I'm not judging it at all. I just I, you know, yeah, no perspective on it. Listen, before we get back to diabetes stuff, there's another listener who's telling me I should live in Ken knob, Utah, K and a B. I can I can NAB Is it a wonderful place? They're selling me pretty hard. So is it?

Adriana 40:52
Yeah, yeah, can NAB is beautiful. That's more of the Southern Utah to and it's, you know, Red Rock. It's definitely desert. But, but then you can get to mountains and it's beautiful. And honestly, I I do love Utah. Because you can kind of get all sorts of different landscape from green, lush mountains and lakes to, you know, Salt Lake City and to Red Rock down in southern Utah.

Scott Benner 41:23
Yeah, I have to be I'm looking for a place to retire where there's no humidity, and it doesn't snow much. That's pretty much my goal. So but is it gonna snow on me and Utah?

Adriana 41:34
In northern Utah? Yes. When I was living, so I lived down in St. George for college. And there was a little bit of snow but it I don't think we got more than a couple inches. That's not

Unknown Speaker 41:47
perfect. Yeah,

Adriana 41:49
up in northern New time. Definitely used to a foot or two. Yeah,

Scott Benner 41:53
I don't want that. Oh, not good. I'm not I'm not looking for that. I it's those here. And I don't need that one. I'm old. Oh, hold on. Alright, so I seriously I know, I joke the beginning but seriously asking, like, what are your plans? Are you? Are you going to have a baby again, soon? are you sticking with one for now? Or what's the play,

Adriana 42:18
we definitely want him to have siblings. So really, I kind of have a lot of pressure on myself right now. Because I'm like, hey, I want to be a little bit more in shape. And I want to get my agency down as low as I can get. But then again, that's kind of how I was before we had it all in and it's it just, you know, you kind of just have to go for it. And just trust that everything's gonna be okay. And because being pregnant with type one was, it was kind of scary.

Unknown Speaker 42:55
How so?

Adriana 42:57
Just, um, I've had multiple friends, or people that I follow, and they've had babies and they've been born early. Like as like 32 weeks early, and, and they've had conditions like heart conditions, or they've, they've weighed like 10 pounds or more and and then the moms themselves have had issues with too much blood loss or.

Scott Benner 43:28
And this all stems from just not having that kind of low tight control that is recommended during pregnancy.

Unknown Speaker 43:35
I don't even

Adriana 43:36
want to say it's because of control. I think maybe there were some other kind of factors too, because I don't know all of their health history, but I do know that they're type one. And, and really, Pregnancy just changes your body like crazy, everything changes. But then to add type one in that blood sugar control, and how much it actually does affect your baby during all of your trimesters, then, that's where I'm like, okay, I want to give the best chance possible for our next baby. And, I mean, we were, we were very blessed and had Oh, and he was two weeks early, but he was already eight pounds, 11 ounces. And and that's partly why we had him early is because he was just getting more and more weight.

Unknown Speaker 44:28
And I had a lot of

Scott Benner 44:29
fluid and he had to get out, right, like, unless you're gonna create like a zipper pouch or something like that. There's, I mean, how much bigger Can he get before you're like, Hey, you know what, leave him in there. Because not looking for this problem. But well, you know, it's funny because I really did just have this conversation yesterday with Jenny. And we talked about three months like she said, I said to her health house, like how long before I plan on getting pregnant? Should I begin on this process if my blood sugar is not already Ready, where you know where a person wants it to be. And she's like, I gotta say, three months, like you have to get down, get stable, and be in a position where you're doing it on purpose, and you're having results consistently, that leave you in the range that you're looking for with pregnancy. And, you know, she's like, you just mean that, sort of the thing that both of us came up with is that it you know, you obviously people get pregnant, not on purpose all the time. But if you're planning it, she was like, the first step is, you know, get your blood sugar's where you want them in a way that are controllable meaning that you know, when you do something, your blood sugar's react the way you intend, not like, I got lucky, and my blood sugar wasn't high today, but I did it on purpose. She's like, then you have to go find a good high risk doctor. And like there was, there's a lot to think about, you know, and a lot of

Unknown Speaker 45:51
green.

Scott Benner 45:54
Will you use the same people you used last time? Like, how was your experience with your physicians and everything?

Adriana 46:00
Oh, I loved I loved my doctors. They were, they were great. And they were, they worked well with each other too, which was probably the most I could ask for. Because my endocrinologist couldn't be in the hospital. He didn't have privileges there. But my endocrinologist is just amazing, too. Because he, he texted me, he gave me his number. And he's like, hey, let me know when you're going to have the baby. And I'll text you, you know what we need to do maybe with your settings, and he would look at my Dexcom reports. Just online every couple weeks and let me know if I need to change anything. And so, but then they also worked my ob and my endocrinologist and my high risk. ob just worked so well together. It's nice.

Scott Benner 46:51
It's great when there's a good meshing between them. But you said your endo didn't have privileges in the hospital. She was sort of like Cyrano, he was just kind of hiding in the bushes yelling up to the window about what to do next. Make your basil higher. Did you were you're pumping your Dexcom it during your delivery?

Adriana 47:13
Yeah, I did. And, you know, my labor was it was horrible. They induced me. And I was in labor for like, 30 hours. And then they finally said, Hey, how about we do a C section? And I'm like, thank you.

Unknown Speaker 47:28
Why didn't someone have this idea? Yesterday? Thank you. Right,

Unknown Speaker 47:32
exactly.

Adriana 47:35
But I think partly too, because I was a first time mom and I told them I wanted to try. And, you know, I was we were so close. But it just I had a big baby. And I'm kind of a smaller stature. And so he just was not gonna come out. But But yeah, I was able even through the C section, they let me keep my Dexcom and Omnipod on and my ob made a specific note to say, Hey, keep her ducks Come on the whole time. She's in the hospital, because the nurses told me they'd have to come in every hour and poke my finger in check. And I'm like, nope, here's my phone. Just tap the screen and you can look at my blood sugar. Please don't wake me up. Just look right there.

Scott Benner 48:22
These are my last days to sleep. I really don't want you to wake me up. Use this thing right here. You can have my phone, read my text. I don't care. Just let me sleep.

Adriana 48:35
Especially after that long labor, I was I was exhausted. And so thankfully, all my nurses, everyone was just great. So it was a good experience other than the length. But it was good. That's excellent.

Scott Benner 48:50
Good for you. I mean, it's important for everybody. It really is because there's a lot of you have to be careful, I think. Because you have to have a lot of different thoughts that you can't have, you know, like your high risk. ob knows a lot about high risk doesn't necessarily mean they know a lot about diabetes. And your endo knows a lot about diabetes, hopefully, but doesn't necessarily mean they know a lot about high risk pregnancy. And so you need everybody's, you know, everybody's input is is very important in that situation. For sure. Did you get tough any point in the nine months that didn't feel long? Or was it difficult to keep your blood sugar's where you wanted to? How did you find the actual process of doing it?

Adriana 49:32
The first trimester felt like forever because we wanted to wait until I got into that second trimester to really to tell people because you just never really know how it's gonna go in.

Unknown Speaker 49:45
And

Adriana 49:46
it honestly felt like I kept having low blood sugars in that first trimester and I don't know if it's because I was trying to overcompensate and I'm like, I wanted my sugars to be nice and low to make sure the baby was okay. But then as I kept progressing in the second trimester, and the third third was the hardest because just all those hormones, I was having to use almost triple the amount of insulin I was used to. Yeah, to keep my blood sugar's under range, but not uncommon. How

Scott Benner 50:19
did you find that the first time you did it? Were you prepared for that huge jump in insulin need? Or was it tough to make that decision the first couple of times, like I'm gonna put this amount in?

Unknown Speaker 50:30
Well, thankfully, my, well,

Adriana 50:32
I say my endocrinologist, but he's also a nurse practitioner, but he himself has type one. And he was like, Hey, I have this insulin, the fiasco insulin, right. And that just works really well and faster. And that helped me to keep it under control as best as I could. But still, I was using a lot. So he was really, I think, between me being aware of it and trying to keep it under control. And my endocrinologist being so good as well, then we both were able to work on it. But

Scott Benner 51:13
he had a good group. It sounds like, yeah, nice. That's excellent. I mean, he must have been thrilled that it went well. Right like it. Was there worry. Even though things were going pretty well? Did you find yourself concerned? Or was there a moment where you just got comfortable? And you're like, you know what, this is going okay, I don't have to, I don't have to worry, at least.

Adriana 51:34
No, I was. And maybe it's first time mom anxiety too. But I was so worried. You know about normal mom things too. Like, oh, how am I gonna stay up all night? Or, you know, how am I going to take care of the baby, but but also, how am I going to take care of the baby and keep my sugar's under control and with the kind of the perk of being a high risk pregnancy as you get a lot of ultrasounds. And so that was fun to be able to see him a lot. But then every ultrasound leading into the third trimester was like, Oh, he is a really big baby. Oh, he's getting bigger, bigger. I'm like,

Scott Benner 52:16
my vagina is not that big. What are we doing? Let's stop now.

Adriana 52:21
Yeah, how big is he going to be? And of course, Google is the worst thing for first time moms. I, I had a friend Tell me Don't Google anything. And then of course, you know, you do a little bit and because just trying to see how much your baby's supposed to gain weight. And that third trimester because it's like a half a pound almost every week and the last couple weeks. And I'm like, oh, and he's already eight pounds. How? How many more weeks? Can we go?

Scott Benner 52:53
What's the scariest thing you googled while you were pregnant? That the thing that you just really read and thought I shouldn't have done this?

Adriana 53:03
Um, probably, anytime you look up like symptoms like this, this was after pregnancy once I had one. And I, you know, he just I think he was teething for the first time. And I didn't know what was going on. And he was having diarrhea and use fever. And he was super whiny. And so you look up all those symptoms, and which I should know better because I work in a clinic, but I'm like, Oh, he's he has cancer. You know, it's ridiculous.

Scott Benner 53:34
Right? Yeah, I hear that. Well, I just go with what happens to a vagina during childbirth. And let me just tell you don't Google that either.

Unknown Speaker 53:42
I could have told you that.

Scott Benner 53:43
Yeah. You know, it's like, as I was typing, I was like, Is this just for funny? Or am I really not gonna want to Oh, goodness. And then I read the first thing and I thought, yeah, no, I don't want to know any of that. Okay, that's enough. Now I hear you, there's this and there's, there's time to be informed and there's time to not worry yourself in diabetes and and every other aspect, especially raising kids, and I hear what you're saying, like the worry that you're just gonna mess it up, in a myriad of ways is real. The pressure like, Am I going to be a good parent? Like, I know, I'm not going to be but how is it and then you start thinking, I'm gonna mess something up. And I tell you to get to existential for a second, but I feel like I'm a pretty good parent. But still, I know that right now, today, or yesterday, or next week, or last month, I've done something that my kids or my wife don't enjoy, and I don't know what they are, because I'm doing my very best, you know, and so that even that's a weird pressure like always thinking about, you know, I'm trying to help these people or support them. Love them. And I wonder what I'm doing that they're just like privately in their minds thinking, idiot, get away from me. You're completely doing this wrong.

Adriana 54:59
My husband And I, the first week, once we had Owen home, he was like, he's alive, he's breathing. He was fed, we're doing fine.

Unknown Speaker 55:10
You know,

Adriana 55:10
there's not much more you can ask for. And as long as he's breathing and alive and loved, then there's not much else you can do each day. And honestly, that's kind of what got us by because those first, really the first month or two with a newborn, it was hard. It was hard work. But, of course, I would say it's worth it. And of course, as we've been talking, it sounds like I'm gonna do it again. But

Scott Benner 55:37
we have no choice, really. But I hear what you're saying. And yeah. When you say it got hard, what happens to you, when you're trying to make space and time for other things when you stop taking the same care of yourself, because I lamented with Jenny yesterday, that the thing that I worry about most for pregnant women is that as soon as something gets tough after the baby comes, the first thing they give away is their own health. not recognizing in the moment, I think that keeping that that health where it's at will benefit so many other things, you probably should cut something else away, then you know, the concern for your own health. But when it happens to everybody, even people without diabetes, I've done it, you know, you don't sleep as much as you should, in the pursuit of taking care of somebody else. And a number of other other situations where people give away a little bit of who they are to be there for someone else. But when it comes to diabetes, it feels very dire to me when I think about it. But But what was the first thing that happened? Was it making meals that were good for you? Was it Pre-Bolus Singh? Was it even just paying attention when your blood sugar was high? Because if I can be honest with you for a second, not that I haven't been so far. But the idea that your pump ran out of insulin while you were sleeping, and that you did not spring up and change it. I guarantee you sounds like a different story to parents of type one diabetics than it does to adults who have type one diabetes, I bet you those two different groups of people heard that story two different ways. You know, it's interesting for me to hear your perspective as a person living with it. So I don't know what I just asked there. But I'm just very interested in how that happens. And if you know what's happening while you're doing it, if you're like, Oh, I'm giving up a little myself here for somebody else, or is it not that conscious?

Adriana 57:40
Yeah, and just even kind of re hearing that two out of your words like, yeah, if that if Owen was diabetic, and he needed that insulin pump change, I would have done it right then and there. Yeah. So it, it is interesting to think that way, like I would care for my child right on the spot. But if it's for me, then it it does wait maybe an hour or two.

Scott Benner 58:02
And, and you're a bright person, and you're well educated and you care about your health and everything. What happens in those two hours? Like, are you just like, you playing games on your phone? Or are you busy or like you don't mean like, what's stopping you from going, because I'm not a great time manager. But the one thing that I do well, is that I, I prioritize on the go. So I have a way that I think of the things that are going to get done today or or even thought about. And as soon as something becomes more important than the other thing. I I slide those things and change positions in my, in my mind, and I don't think twice about like, Okay, this is more important. Now this moves here. What happens to me what happens to you in that time?

Unknown Speaker 58:48
Um,

Adriana 58:48
I would say that my family always would say that I am willing to give up a lot of things for other people. I am a caretaker, I will take care of somebody else first, because I know that I'm fine. And those two hours I know, okay, my sugar's a little higher, but

Unknown Speaker 59:09
I'm okay.

Adriana 59:11
And, you know, I'm up and moving. I'm trying to, you know, get things ready for the morning and trying to get my baby cleaned and dressed and fed. And, but I knew, even though I knew I needed to get a new insulin pump on, like, I knew that I was fine. At least for the time being, I knew i'm not i'm not going to leave the house without getting my insulin pump on because that is a priority before I leave because I want you know, I want that insulin or want, like, extra snacks or something to bring my sugar up because I want to be prepared that way. But I I'm a mom, and so I'm taking care of my house and my family first and and, you know, I knew that I would get to it. And I knew I'd have time to sit down and get to it. But I just

Scott Benner 1:00:07
I'm not coming down. I hope you realize like, I'm not judging you. I'm really just interested because I hope you can feel that. Yeah. Yeah. Good, good, good. Yeah, I listen. I hear what you're saying, I the sprinklers on the other day, and I only want to leave it on for 30 minutes. And I was like, I don't feel like going back outside. And I could feel the money like leaving my pocket. And you know, it's not health, but it was still I was just like, what is this gonna cost me five more dollars not to get up right now and turn off that thing? Maybe? I don't know. Yeah, I was tired. And, and I do think if it was my own health, I would react differently than I do about Ardennes. And I don't even know what that says. Like, I would die. You know, I would consider myself a person who has a caregivers mentality as well. But I would tell you that over the years, it's become evident to me that there were some things I gave away, that I didn't have to give as much of it away, there would have been a way for me to manage other people's needs and mind better. It didn't have to be. It was it didn't have to be an all or nothing scenario. That that's Yeah, I think if I were to give you one piece of advice, I would tell you, I don't think it's an all or nothing. The way you're thinking about it. That's all there. That's what I got out of the extra 20 years I've lived in you have. Yeah, you would think I would have learned more than that in 20 years. But that's pretty much all I have to say.

Unknown Speaker 1:01:34
Oh, well. Thank

Unknown Speaker 1:01:35
you. Yeah, seriously?

Adriana 1:01:37
Yeah, it is something. Of course, you know, we're always trying to progress and improve and But yeah, I think slowly, but surely, I'm learning and learning to to delegate and say, Hey, you know, Chris, can you can you feed around because I need to, you know, eat something or I need to change my insulin pump. So yeah, there's, you know, it's kind of even almost the same mentality of when we had open as a newborn, like, Hey, we're alive, we're breathing, we're doing okay. is kind of almost sometimes how I feel like with diabetes, like, Hey, I got my sugars, you know, pretty well controlled today. I ate today. So we're good. But, but, you know, each state has its own struggles.

Scott Benner 1:02:25
I cannot say that. I don't understand what you're saying. I want you to know that other people listening are really impressed. And I'm probably just hanging on now through the the end of the hour. Because they're like, Scott didn't even ask her about her magic underwear at all. Which is something excuse me, which is something that I have. I you know, it's funny, my wife doesn't listen to the to my podcast, or me, in case you're wondering. And we were talking the other day, and I said, I have somebody coming on, you know, tomorrow that I'm going to interview. She's younger. She's a kid. And she asked how old you were. And I told her, and she just oh, that's that's not you know, we were young like that. And I said, Oh, yeah. I said, She's a Mormon. She's got to get going. She needs like, 20 more kids. And she goes, really? And I said, Yeah, I said, I said, a lot of people who are in the Mormon religion end up on the podcast, my wife goes, really? And I was like, he she goes, why? And I'm, like I said, I couldn't begin to tell you, I asked every one of them and they don't seem to know. And so we started, we were talking about it for a minute. And she's just like, that's really interesting. And I said, Yeah, I said, I learned a lot of things. I don't, you know, I wouldn't normally know I said, You know, I said I ask every one of them about their magic underwear. And now my wife's face turns blank, because she does not know what I'm talking about, and is probably 100% sure, I'm thinking when I'm looking at her, that if there is such a thing, I mischaracterizing it or giving it a name that doesn't completely consulting to other people. And she's like, you do not say that other people. And I was like, wait, what are you talking about? I said, first of all, people who are involved in the Mormon religion have better underwear than we do. That's just a fact. And secondly, I think it's magical. I can't say for sure, but I've heard stories. And so why would I not ask people and my wife is real serious. She goes, why would you ask them? That's the wrong thing to ask them. And I said, I think you and I have a very different idea of what these podcasts should be about. She's like, obviously, that's like,

Unknown Speaker 1:04:24
Oh,

Scott Benner 1:04:24
is it comfy? It looks comfy. Is it comfy? Are you wearing it? Now? Tell me please.

Adriana 1:04:29
Yes, of course. I wear it every day. But, you know, obviously I have different pairs. You know, just like, I hope everyone does

Unknown Speaker 1:04:38
the same pair every day. Well, thank goodness.

Adriana 1:04:42
Let's clarify that.

Scott Benner 1:04:43
When do you get it when you're married? You don't have it before? Right?

Adriana 1:04:47
Um, well, it depends on each person, okay. In our religion, so if you see, like our temples, there's a process called the endowment And so we get to go to the temple and we get to, that's when we get to get our garments and we make promises to our Heavenly Father and

Scott Benner 1:05:12
in exchange, that's lovely, real tangible thing to take with your life. In other religions they give you like flowers or, you know, they'll rub some like schmutz on your forehead or something like that. You can't do anything with that everyone needs underwear. And it's called, they're called God, you refer to them as garments, though, is that right? Yes, they

Adriana 1:05:33
are gardeners and, and we do wear them every day. Of course, you know, if we're going to go swimming or something, then we don't wear them, but, or, you know, any activity, like if I'm going to go, like, sometimes we go out mudding like in our trucks or something, then, you know, I don't want to get them dirty. But if, if there's a time and place to wear them, then I wear them. But we do wear them. Because, you know, rather than flowers or something because it is supposed to help us remember those promises that we made. And so it's, it's kind of like, you know, you have a special like your wedding ring to remember. You know, your marriage and all of that. And so it's it's basically like that, and, and I'm probably, you know, butchering exactly the right,

Scott Benner 1:06:25
you're not you're not a spokesperson for the church, I'm just getting your opinion. Here's what I'm thinking while you're talking. They made it underwear so that when you were thinking of having sex with a boy, it'd be the last thing you saw before you were naked, you'd be like, Oh, I did make some promises, they would just want to remind you of those promises. Right before you know your boobs are out, I think is exactly what this was about for boy's penis, but you understand what I'm saying? I do have one question. And this is going to need you to infer into my stupidity. Why do I think they're magical? What did I hear once that makes me say that? Or do you have no idea?

Adriana 1:07:04
Well, you know, I've heard stories, but of course, it's it's stories, and I don't I don't know the truth to them. Because I don't know when, like, someone's specific to me with a story. But I've had I've heard stories that people you know, how I was riding my motorcycle, and I fell, I got in a crash and I fell off. But everywhere else got skinned up, but where I was wearing my garments, and I'm like, where you can say because we're pulled, you know, we wear them to be protected. Because we you know, we made promises and we and to have faith and but it's I almost I look at it more as to remember what I've promised not as a protection, necessarily. But so I wouldn't, I wouldn't say they're magical, but I would say you know, they they helped me keep the kind of mindset I want to have

Scott Benner 1:08:04
that makes sense. And listen, I've googled magic underwear while we're talking and interesting. Temple garments come right up. But here's what I've learned. And I'm gonna be serious. There's Wikipedia stuff, but then there's also you know, there's some people saying look, please don't call it magic underwear. It's insulting and it's like, Oh, damn, alright, well, it's too late. Now we've already recorded my voice saying that and and going on, but it did come back to it. I'm not the only person who's ever said this out loud, obviously, because I got enough returns. I also got a couple of lovely pictures of G strings and something called the shape mint. Empty tattooed all day, everyday high waisted waistband, which I don't think is Mormon. But the girl does look kind of magical in them. And but it's uh, you know, it's just really, I don't know, like I find it fascinating and not in a way that I really probably shouldn't be joking around because I don't feel jokey about it. It really is just something I don't understand. And I'm always looking and by the way I've asked six people now and six different people said six different things so I'm just saying I need to find out this is it this is my only way to find out my wife of course if she could hear me right now it'd be like leave that woman alone. Why are you

Unknown Speaker 1:09:23
bothering

Adriana 1:09:24
Well, I will I will tell you this because you know i think you know it is up to each interpretation but if you if you want to really know like the church's stance on I mean, I should have a better a better verbiage for you about it,

Scott Benner 1:09:42
but you got a little kid you got diabetes. Don't put that on yourself. Seriously, am I making you feel bad about this? Let's stop. Oh, no. Okay, no,

Adriana 1:09:50
I'm just like, I should know better because but i do i. Anyways, what I'm trying to say is the church you know their website. The Church of Jesus Christ of Latter Day Saints does have a cool little video that really does show the garments and explains what they are. So I mean, if you, if somebody is really curious, or they have a video about it, they're not secret.

Scott Benner 1:10:15
Let's see why they think they were secret.

Adriana 1:10:18
Well, that's the other thing I've heard from people is like, Oh, it's, there's things that are secret and like, no,

Scott Benner 1:10:24
you're not telling anybody about them? Well, not. No, not everybody can see it. But still, it's you know. Yeah.

Adriana 1:10:32
I mean, I'm not gonna tell somebody what color of underwear I'm wearing. You know, just if I wasn't wearing garments, you know, it's just

Scott Benner 1:10:39
be private. Yeah. There's nothing to say there. I hear you. Yeah. All right. Listen, we've learned a lot and nothing. And that makes this a perfect podcast episode. It really does. I want to make sure. Is there anything that we didn't talk about that you were hoping to talk about? Because I'm, you know, a babbling lunatic. So sometimes it's not. I'm not very good at getting through things, but anything at all? No, I

Adriana 1:11:06
feel like that's a pretty good, pretty good explanation of diabetes and me and kind of, yeah, it's just day to day.

Scott Benner 1:11:17
Cool that night. I appreciate that. I feel like here's what we learned. If I were to sum up this episode, you found out you were a type on when you're 18. They thought it was type two for about a year you took Metformin figured it out wasn't that much relief, because it felt more like oh, wow, like, this is not something I can really impact and make go away. You met a boy on Tinder. He said something nice that made you think he wasn't just a muscle head? Then you gave him your babymaker and you're working on it. Now you got one go and probably 10 or 12. More coming? your underwear is not magical. But hey, if you fall and don't get scratched underneath it, what's it hurt to say if it is, and diabetes is difficult while you're pregnant is difficult while you're raising a baby. But you're trying to get things in better order for yourself. So you can be a mom for your children for a long time. How'd I do?

Adriana 1:12:12
You know, that pretty sums up our conversation. No, I

Scott Benner 1:12:14
did it. are you right now? Like I can't believe he was listening cuz it seems like he's

Adriana 1:12:22
when you say all like that, like, Oh, that's really what we all talked about.

Scott Benner 1:12:27
And by the way, we'll leave this part in for people who always ask me how come the episodes titles aren't about what it was about? So you tell me what should I What should I title this episode? I know why you laughed because you just thought magic underwears that why

Unknown Speaker 1:12:44
exactly.

Adriana 1:12:47
That would be good. But no, no, it's not. It's well, because when I first contacted you, I I was trying to start kind of a blog of my own which then I realized being a mom with a little kid and working through COVID it's that didn't work out. Yeah, no, no What time is short. But um, but I'm a Latter Day diabetic and that's that's who I am.

Scott Benner 1:13:17
Latter Day diabetic is probably going to be the name of the episode. That was very good. That's it. But now of course, you have to understand now that in my more Honestly, I'm like ladder with D's or T's. I'll figure it out later.

Adriana 1:13:32
latter tees, but yeah, yeah. So yeah, it was great. Though, thank

Scott Benner 1:13:39
you very much. Hey, if I come to Utah, or my politics so like, they will they like just push me back out of the state? Or is there a forcefield that I'll run into for having no being liberal or anything like that or no? Right now, although now they're really conservative people listening, you're like, Oh, I'm sorry. You have plenty What?

Adriana 1:14:01
I was just gonna say the more and more people I see move in are actually from California. And there's this like, ongoing joke of people moving in and they're like Utah, and they have like the shape of Wyoming. They're like, move to Utah, and they're trying to push them over to Wyoming.

Scott Benner 1:14:18
Alright, hippies, I'm on the way, don't worry about it. I'll come. We'll balance this all up. It's so funny. Because when we're just now when I was talking, I thought there are five of I don't I never think about the political leanings of people listening to the show. I have no concern about it, and I don't care. And I do think that if you listen to me, I don't probably feel very liberal. And it's funny, I'm not, but I really am. And so I'm very liberal about some things and I wouldn't call myself conservative about anything, but I have more conservative ideas about things that you wouldn't expect maybe. I'm sure a lot of people can, you know, talk about themselves, and probably Feel like the idea of like, I'm really kind of down the middle on most, you know stuff overall. But yeah, I get worried about that sometimes like, I'm like, if I go there, well, they just Can they see it on me or will they? Can they smell it?

Unknown Speaker 1:15:13
Oh no,

Scott Benner 1:15:15
that guy probably voted for a democrat once we got to get requests. You know, like and then I find myself like in some desert in Utah being eaten by snakes. By the way, are there snakes there that are poisonous?

Adriana 1:15:27
Um, we got rattlesnake.

Scott Benner 1:15:28
I can't. I'm sorry. I thought this was gonna be a real idea. But I see now I can't. And I'm out bears. rattlesnakes, humidity, snow. These are things I need to avoid. I'm delicate.

Adriana 1:15:42
Yeah, we don't have humidity here. So you won't get that. But we do got bears and mountain lions. And

Scott Benner 1:15:48
so I gotta have a gun. Like just to walk outside at night.

Adriana 1:15:53
Hope sometimes when you're in the mountains, but

Unknown Speaker 1:15:57
yeah,

Scott Benner 1:15:59
I'd have to figure out how to shoot a gun first, then. There's a lot to do.

Adriana 1:16:03
You come to Utah. I'll teach you how to shoot again.

Scott Benner 1:16:06
Well, yeah, that's a nice that That's lovely. I'm gonna make sure your blood sugar's nice and stable. First, I don't want you out there. 350 showing me how to shoot a gun. I'll be like, Adrian, how long is that pod? been on? It's been on the whole time. How's it before we start? How do you feel, by the way, after an hour to get your blood sugar back down? You feel better?

Adriana 1:16:24
Um, you know, my blood sugar is still a little higher than I want it. But, you know, it does feel good to. I can always feel People always ask me like, how do you feel when your sugar is high? And I'm like, there's not really a good answer for that. But the best way that I feel is like, that sour stomach kind of feeling. And, you know, maybe just not. Yeah, that. And just not completely in my head, like, kind of that foggy feeling. But Well, listen, here's

Scott Benner 1:16:55
a practical idea for you that I use when I didn't bring it up at the time, because we didn't know each other well enough an hour ago. But now I feel like I've seen your underwear. So we're good. And I would have put well seen, you know, by understanding the greater picture, you understand what I'm saying? Yeah. Yeah, you made me embarrassed, I can't even say what I was gonna say is I would have slapped that pod on. And I would have like doubled the basil for Arden for like an hour. Right away. And Bolus a correction for the number. And maybe like even a little more like I would have crushed it like because a new insulin pump site sometimes is not as you know, effective as it as it will be in an hour or two or a day. So I kind of pushed more insulin in that scenario, especially with the number in the 300 I would have pushed hard and drinking water. You should be hydrating to get that out of you. And you're an adult and don't need me to tell you any of that. But that's the things that like I would have done for the people listening Oh, yeah, please. Alright, listen, this has to stop or you and I are gonna strike up some toward online affair. And we already know we can, you can be had through an app. So I don't want to ruin your beard or mine or anything like that. It's very nice, very much to me December to being that you're basically a child and I'm almost a senior citizen. So I really appreciate you coming on and doing this. I genuinely do. A huge thanks to Adriana for coming on the show. And adding to that ever growing list of Mormons that have been on the Juicebox Podcast. If you'd like to be on the podcast and you think you have a great story to tell, reach out, find me Scott at Juicebox Podcast calm. And if you're a Mormon, and you know why this show is so popular in Utah and within your community, please, I want to know Thanks so much to Dexcom on the pod and touched by type one for sponsoring this episode of the Juicebox Podcast Get yourself a free no obligation demo of the Omni pod tubeless insulin pump app my Omni pod comm forward slash juice box and check out that dexcom@dexcom.com forward slash juice box. If you can't remember that there are links in your show notes and links at Juicebox podcast.com. And don't forget touched by type one at touched by type one.org or on your social medias, Facebook and Instagram. Thank you so much for listening. be back soon with the next episode of the Juicebox Podcast. I genuinely appreciate you listening. I love it. When you tell somebody else about the show. Please subscribe and an app. And what else? Oh, if you're really into management stuff, check out the private facebook page Juicebox Podcast, type one diabetes. And if you just want to keep up with the show on Facebook, it's bold with insulin and Of course, I'm on Instagram at Juicebox Podcast. I feel like I'm on a roll. So if you're looking for those diabetes pro tip episodes, they're right there in your podcast player, they begin at Episode 210, where you can find them at diabetes pro tip com, looking for defining diabetes there in your app as well. Just search defining diabetes, they'll all pop up. And if they don't, you can find them at Juicebox Podcast comm too. All right, that's it. It's the beginning of the year. I'm super excited for season seven to be going on. I hope you're enjoying it. It's gonna. It's gonna be great. Why would I say otherwise? you imagined I was like, Whoa, season seven. train wreck. It's on the way people stay stay. But it's not. I got good stuff coming. You want to know what? All right. Um, no, I'm not doing that. Although I am looking right now, at the next three episodes. And they got goodness written all over him. You want like a sneak peek? Hmm, maybe? Maybe? Well, I won't I write one little tease. You know how we always have adults on her like I was diagnosed with type two diabetes. And it turned out I was type one. You know, and they're like 25 and 28. And everything. Soon, someone's coming on who was diagnosed with type two diabetes and had type two diabetes. Have some stuff coming up about a service dog with Esther. And Jaden is going to be on the show very soon. James young man who I just recorded with, and his episode is terrific. I can't wait for you to I'm going to give you that one next week. How about next week? We do Jaden and the service dog episode, or do we want to do the type two? I don't know. I'll figure it out. So

I'm still here. I didn't go anywhere. The hours mean nothing anymore. days are blending together. I don't even care what time it is. Stuck in my house. Has nothing to do whole worlds upside down. All right. That was a bummer. Should we do something fun at the end? Why don't we make fart noises together. I'll count the three. And then we'll all make a fart noise. So wherever you are right now, you're in the grocery store, or your kitchen or driving in your car. I don't care. Now just lick the palm of your hand. Like if you're in the grocery store, maybe don't like the palm of your hand. Just but I mean, you know what live dangerously so you lick the palm of your hand. And then just press it up against your mouth and it only works with really need two hands. Hold on. Sorry. I tried it with one hand that did not work. I'm going again. If you did that, seek mental health counseling. You really shouldn't be listening that closely to a guy on a podcast. Although if he did it You're my people.


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#427 Red Dye

Scott Benner

Oh my!

Laura's young son was diagnosed with type 1 diabetes.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:14
Hello, friends, and welcome to Episode 427 of the Juicebox Podcast. On today's episode, Laura is with us. She's the mom of a small child, who was recently in the last couple of years diagnosed with Type One Diabetes. And the way they got to the diagnosis was really interesting. Please remember, while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan for becoming bold with insulin. Just a quick reminder to check out the T one D exchange at T one day exchange.org forward slash juice box. If you're a US resident, you can add your data to the registry and help everyone living with Type One Diabetes.

This episode of The Juicebox Podcast is sponsored by the Contour Next One blood glucose meter, you too can use Arden's blood glucose meter by going to Contour Next one.com forward slash juicebox. Everyone has a blood glucose meter. But you all don't have a meter like this. It's so easy to hold, use and has incredible accuracy. You owe it to yourself to check out Contour Next one.com forward slash juicebox. This show is sponsored today by the glucagon that my daughter carries g Vogue hypo Penn, Find out more at G Vogue glucagon.com forward slash juice box.

Laura 2:08
Hi, my name is Laura. I'm married and have two kids. I have a 15 year old stepdaughter who slipped with us pretty much all of her life. And then we have a five year old son named Joseph and he is our type one he was diagnosed when he was three, back in October of 2018. We're coming up on our second diversity. And we are we've been at home for the last several months, you know, with all of the things going on. So it's really given us a chance to hone in on settings and kind of just focus on the diabetes without worrying about the school and everything. So we're getting there really, really doing well.

Scott Benner 2:55
So better than getting there. All right, well, let's find out about so there's a couple of threads to your story that I want to pull on. Yeah. And first of all, is we met somewhere where was that? I

Laura 3:05
did. So I actually I live about two hours east of Dallas. And there was a jdrf I believe type one nation summit in the Dallas area. And I had a couple of friends that are in our local type one group that we realized we were all going and so we kind of met up there. And whenever I realized that you were going to be on the speaker list. I didn't care what else was going on. If there's another session that was just as good. I was like, No, there's no way I have to go to that one. But funny story with that is is I actually before COVID had. It's funny how they say elective surgery because it really wasn't. But I had to have a surgery around the same time as the conference and told my husband I said, I don't care if we need to push it back a week. You know, this is elective, they said it's not a major emergency. I said I really want to go to this conference. I said so let me go to the conference, and then I'll have that surgery afterwards. So yeah, I actually planned the surgery to coincide after the conference.

Scott Benner 4:16
You know, I was a late add to that one. And because of that, I got what I would consider like a side room. And, and I said to the person I was like, Look, well, I'll do that. I'm like that rooms not gonna hold all the people though, that are gonna show up and she's like, no, no other buddies already picked up their eyes again. Okay, we'll see. And that room was packed, people were flying out the doors and stand that along the walls and bringing

Unknown Speaker 4:41
out

Scott Benner 4:42
chairs for the aisles. And that was fun.

Laura 4:45
Went to the keynote, and you know, earlier with the lunch and it was funny cuz I was talking to my friend. And I said, wouldn't it been so much better if he had been the keynote and we could have filled this whole ballroom up instead of having to go into that little room.

Scott Benner 4:59
I thought The same thing, nobody listens to me though, so it doesn't matter. And those things are probably never going to happen again. So I think you came to the second to last one of those I'll probably ever do

Unknown Speaker 5:09
solo, I

Scott Benner 5:10
don't know. But I really did have a good time. It was weird for me, because I usually show up at those things and speaking number of times during the day, and because I was just sort of doing a favor at the end, you know, and showing up kind of at the last minute, I just, it wasn't, I didn't know what to do for like hours in the middle of the day, like, what do you do now? Right? Do you just like ice walking around talking to people, and I just didn't, I was I was a bit a little lost, but the group was great. And I got to see, they hand out questionnaires to the people in the room at the end to fill out like what you think of the speaker and that kind of stuff. And I got to see that. And it was really cool. Like, I know how much people enjoyed it. So it was it wasn't just my interpretation of how much they enjoyed it. Because in my own mind, you all loved it. Just say,

Unknown Speaker 6:00
Oh, yeah, it was great.

Scott Benner 6:02
So funny. So as a person who had heard the podcast prior, but then we're sitting in the live, how do I do in an hour of encapsulating the podcast and making it seem like something you'd want to check out? And did it seem reasonable? Or did it sound like,

Laura 6:19
Oh, for sure. It's one of those kind of things, you had both ends of the spectrum. You know, you had the ones that had been listening and wanted to be there, I guess more for confirmation for themselves to kind of keep up what they're doing. Maybe see if there was any new things. And then you have the ones that have never heard you before. And I think it was, it was awesome. You know, once I left and went to the next one, it was a panel session. And it definitely wasn't full by any means. I think we ended up leaving about halfway through it. I was like, Yeah, I've heard all this. But um, it was one of those things, like I said, the ones that have never heard you before. We're just asking such great questions that, you know, you've covered on the podcast, for sure. But it was it was great, because I think they get that sense of I'm not sure how to say but like a familiarity, like, you know, you're there in person, they can ask you this. And, you know, one question better off of another. It was, it's hard to compact all that information in such a short amount of time. But yeah, definitely. I think one of the biggest things I remember people noticing was the slide where you had all of the podcast episodes that you suggested to start with. And I think I think I saw like, half the room cell phones go up and take a picture of it. It was, it was cool, because I know a lot of people probably started listening after they left or, you know, on the way home or whatever

Scott Benner 7:45
I have to tell you when in that specific room, there was an endocrinologist in the first row. Oh, wow, I had met him the night before. It was really delightful, and was telling me how much he enjoyed the podcast and everything. But there was times where you know, I mean, listen, you're there. I'm not a medical person at all right? So I'm relaying my experiences, which are, for the most part, not consistent completely with what people are told in doctors offices, right? And so I'm talking about what we do and in conversations I've had with other people, and like, my eyes would just drift over to him once in a while, like, is he judging me? Or how's this going? But he was smiling again. I was like, all right, he's in we're good. Like, you know, let's, let's keep going. Not that it's not, you know, I mean, you start the thing by saying, Look, I'm not a doctor, this isn't medical advice. You know, right. You're gonna hear about my experience with my daughter. I don't even have diabetes, for God's sakes. You know, like, yeah, I mean, maybe you shouldn't even be here is like how I feel what I'm saying it but to see people rattling along and like you said, getting kind of jacked up and asking questions and and then the notes you get in the weeks afterwards are always very amazing. Like just like I never thought of this and you should see what it's doing for me anyway, it was it was really nice to meet and and to be there. I really hope that one day we're all allowed to gather in rooms again. And

Unknown Speaker 9:03
I really did here.

Scott Benner 9:04
I would do I would definitely do more of it. I enjoyed it. The traveling part is is not good. That that part I don't like very much.

Laura 9:13
Did you have like some experience at the airport? I'm trying to remember if it was that one or another one? That Oh, no,

Scott Benner 9:19
no, yeah, I left there. So what people don't know. None of this is is a glamorous thing like you hump yourself in you know, the day before you're going to talk and so you're pretty exhausted when you're talking to begin with and, you know, you get a car It used to be somebody put you in a taxi, like a gentleman, but now they're like, get yourself a car and find your way here and you're like, Oh, Jesus, all right, okay. I'm not exactly an Uber person. So like, you know, I get to the hotel and there's some problems checking in I get that all worked out and they give you a nice dinner and but you've got a headache from the, you know, from the travel. Like I'm sitting there like, Oh my god, you know, and, and then it was all I felt like I got like, paid back 1000 times by meeting everybody but then I got back to the airport, which is by the way you're done. And then they're like, Alright, well get yourself to the airport, I actually a person who came to see me talk and I got them to drive me. Nice. My wife's like, one day you're gonna get murdered. And I was, like I said, I think I'm better off with people who like the podcast and just a random Uber guy, right? There you go. So we get to the I get to the airport. And I am really gassed. Like, it's, it's a quick turnaround, like, I'm back in an airport 36 hours after it was in one. And I'm sitting there just trying to think, like, I'm gonna go into the restroom and change into something more comfortable to fly in. And I'm sitting and listening to music and trying to find my center a little bit. And this person comes up to me and just kind of waves in my face. And I take out my headphones. They're like, Hi, are you Scott? And I was like, is this weird happens, like, Am I getting a shot? Right in an airport? Like, what did I say on that podcast, you know, and it ended up being a person who was just a fan of the show. And I said, Oh, were you just at my talk? And she goes, No, I was like, wait, what, um, you're not from Dallas. We're happenstance Lee in an airport together. And you recognize me from a podcast about type one diabetes? Wow, I was like, I made it. But no, it was really nice. It really was like, it's not something you know, you don't you don't float a podcast in the world. And think One day, a random person in an airport is gonna know who you are. Right. Very weird. So Dallas, definitely a it was a great experience. And I liked it. I liked the people and, and everything. But like I said, I don't know when we'll ever do something like that again. Anyway, will you share with me what your elective surgery was?

Laura 11:43
So, um, I actually have a family history of colon cancer. And so my grandfather actually passed away from it. Back when I was, I believe a junior in college, so 15 years ago. So anyways, my dad ended up and my aunt ended up having to have colonoscopies, you know, pretty regularly just to you know, alleviate any, you know, problems. But it was never really passed down that I needed to do that, or my sister needed to do that, you know, at that point, and, you know, I'm 36. And so, colon problems really aren't, you know, common at my age, it's not that they don't happen, just not common, but ended up having. So long story short, and I had been having some digestive issues and things but kind of passed it off. And it seems to have gotten better, about a year prior. And coincidentally, it was kind of around the same time that Joseph was diagnosed. So things really didn't, for me, and they weren't in the forefront, because, you know, I was thinking about him and everything. And it really didn't feel like mine wasn't that big of an issue. Of course, as a parent, you, you know, you take better care of your kids than you yourself sometimes. But I'd gotten to the point where I went to see a gastroenterologist after seeing my primary care physician, she said, let's get this checked out. Let's roll out something make sure it's not something minor. And you could just, you know, take some meds and get better or whatever. So see the gastro and he says, Let's do colonoscopy and endoscopy. You've had some, you know, you have asthma. And then I had the some of the gastro problems that were showing up and he said, let's go ahead and just do this and rule out things and hopefully, maybe it's just something simple. So when in for that around Thanksgiving of this past year, they find a polyp that was too large to remove. And while I was in the colonoscopy, endoscopy ended up being fine, I had a hernia, but they were able to remedy that. And so he says, let's go ahead and schedule you for surgery. It's elective. So being in public education, I don't have a lot of time off. And because it was elective, the hospital wouldn't do it around the holidays, which would have been perfect because I would have already been off for it. And so I ended up having that in February after the podcast and not sorry after the conference. Yeah. So anyways, get the results back couple of days stay in the hospital, I had to it was a colon resection they ended up taking out I think four centimeters of my lower colon and it was kind of one of those. I wish that I would have probably taken care of this sooner but thankfully it was good timing doctor said they caught everything, but that it could have eventually turned into colon cancer had it been left 10 you know, 15 years so it's one of those kind of things that like I said, it was just good timing thankfully didn't let it you know, procrastinate any longer and got it done soon enough.

Scott Benner 14:53
But that's a serious story. I think I thought you're gonna say like I was getting like butt implants or something like that. No, no. And then when you said it was something serious, I thought, Why can you imagine that this story ends with her put this off to come to see me talk. And then she has happened. I'm like, Yeah, I

Unknown Speaker 15:09
wouldn't have told you if that was the case.

Scott Benner 15:12
If I gave you cancer, you would have kept that out of this. I appreciate that very much.

Laura 15:16
Well, thankfully, like I said, 10 to 15 years, it had a good lifespan it would have happened in but

Scott Benner 15:23
what's it like now for this? Like, when do you have to how often you have to check in on it.

Laura 15:28
So a good thing about it is, is, once they got it, it was the only one there. So there's not really a lot of follow up other than just every now and then I think he said, Every two years, I'll have to go back for a follow up colonoscopy. And then obviously, as they don't see things, they'll span that out maybe two, five years? Or

Scott Benner 15:48
do you have hair covering your microphone or something weird like that? You just got siblings, you just got much softer.

Laura 15:55
any better?

Scott Benner 15:55
I don't know. You have to say something?

Unknown Speaker 15:57
Can you hear me? No, it's

Scott Benner 15:59
far away. Is the mic near your mouth?

Laura 16:01
It's right near it.

Scott Benner 16:02
Here. How did that happen? All right. Now you were talking and you just got you got farther away on me. That's all. Alright. Okay. So there's follow up to do. But there's, there's no like you don't, I mean, they're not telling you you need to live like this is going to be a problem, you have to change. Not at all eating or

Laura 16:21
So prior to whenever I'd gone to see the gastroenterologist and I had kind of changed up my diet a little bit and take away some of the things that were less acidic, and make sure that I wasn't drinking, you know, like gallons of orange juice, and things like trying to think like broccoli, cauliflower, things that were gas producing. He said, you know, take those out and nuts, things like that. But he said, You know, you're a normal 36 year old and don't feel like this has to hinder you at all. So, whenever Joseph was born, I had a C section. So I was already familiar to an abdominal surgery to begin with. So at this point, I have a horizontal section from the C section and now I have a vertical incision from the colon resection. So I've got a little t that makes you also

Scott Benner 17:18
met may one day have a podcast episode called Laura farted too much. So Oh, my God, my

Unknown Speaker 17:24
husband would love that.

Scott Benner 17:28
Well, we'll see. Maybe you'll say something else that'll get you off of that one. But strong contender right now. So anyway, so you had like you said, you have a stepchild, who's the you're older, and then you're younger? Is the type one diagnosed at three. In your note to me, you're talking about pretty significant. I felt behavioral issues, especially for a three year old. Can you tell me what was going on? And did it just sort of start out of nowhere. I mean, was he like a pain in the butt when he was nine months old or like what happens?

Laura 18:02
So when he was born, like I said, being an education, I had to go back to work with, you know, limited time off. He was born at the beginning of January. And I went back last week of February. And it was about six weeks after he had been born. And we were lucky enough to have an amazing friend who was a stay at home mom, and she kept him for this app from the time he was six weeks old till he was about 18 months. And so we were able to thankfully kind of avoid all of you know, the daycare snot and all that fun stuff that first, you know, year and a half that he was able to be with her. And he started school when he was 18 months. And it was kind of one of those he was impulsive. Very much. He was aggravated A lot of times when things didn't go away his way more so than I would think a regular 18 month old would be he would push or hit or whatever. And we didn't really have that at home. And so it was kind of one of those like, Where's this coming from? And he's obviously never liked the word No, he he stubborn. He likes to get his way. And there's you know, a tape there's a 10 year age gap between him and his sister. And so, you know, it's not like they hang out and you know, they'll play with each other to a point but you know, a 15 year old and a five year old you're you're not gonna see them together. 24 seven,

Scott Benner 19:32
pretty limited intersection of ideas and thoughts.

Unknown Speaker 19:36
For for sure.

Scott Benner 19:37
Oh, by the way is your 15 year old is really has that much in common with your five year old than your 15 year old has a problem like Yeah.

Laura 19:46
But yeah, so he he would get in trouble at school and it would just kind of be hit or miss. A lot of times but I would kind of dread getting the note home. What had happened to him The day like, oh, God did he hit, he didn't buy, I will say that, thankfully, he did get bit, but he didn't bite himself. But he would push or he would shove or whatever. And we tried lots of different behavioral interventions where we would, you know, let him be off on his own, give him time to then certain things or whatever. So, um, he's at that school for a full year, almost two years, almost two years. And he had gotten it gotten to the point where the school is like, let's take a break. They weren't necessary.

Unknown Speaker 20:42
It's not, you get out

Laura 20:44
that weren't necessarily saying you're out, you're gone, as but they said, let's take a break, you know, come back in the fall, he was going to go during the summer, a couple of days for like a mother's day out kind of thing, just to keep them in for a little bit of, you know, kid interaction. So anyways, he's out, but I'm still working at that point. And I have to figure out whether or not I can get him into another school. And thankfully, it was only a couple of weeks, I'd visited a couple of other schools. But the problem is, is you go into it with this stigma that your kid's been a behavior problem. But you know, it's one of those kind of things that every school is different, they deal with things in different ways. But the new school he went to was great, brought him in, welcomed him. He had the only thing I didn't like about that was there's teachers changed a little bit more frequently, there's a little bit more turnover at that school. Yeah, they have

Scott Benner 21:39
more stress

Laura 21:41
a little bit. But they had a built in cafeteria, they provided food if we needed it, he ended up not liking the foods that they did. But once we had left the previous school, one of his teachers had suggested going to look into occupational therapy, to see if there might be some sensory issues. So we ended up going to our occupational therapist here in town. He did get diagnosed with sensory processing disorder, we went through several months worth of therapy, things started to get better. And then bam, he's diagnosed. And we're like, maybe this isn't sensory, maybe this is something that's related with the diabetes. Yeah. But my both my stepdaughter and my husband, and a couple of members of his family have ADHD. And so there's definitely some signs pointing to things that are, you know, related to ADHD that there's a good chance he has it or add, not sure, too young to diagnose at this point. And we definitely don't want to medicate him at five years old, you know, yeah. So. But yeah, so he's diagnosed, he was at the school. The new school that we moved to, for a total of say, he wouldn't may is diagnosed in October, and he went a little bit during the summer. So what, five, six months? So it was one of those things when he got diagnosed, when we were in the hospital, I was, you know, scared, talking with my husband, like, what if they don't take him back because of this, you know, that's obviously it's a it's a daycare. It's not a school. It's not public, there's no nurse, but when I called them and he got diagnosed over a weekend, so of course, we had a couple of days to freddo for it. But when Monday came around, I was able to call them from the hospital. They said, Oh, no, that's great. We actually have another type one here. She's a little bit older, and comes to the after school program. So we're familiar with the finger sticks and and insulin if we needed to give it so it was kind of one of those. Oh, okay, breathe a little bit kind of thing.

Scott Benner 23:59
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I love the Contour Next One blood glucose meter. That is not hyperbole. It is small and easy to hold. It has a super bright light for nighttime viewing. It has test trips that allow you to go back in if you don't get enough the first time. You I mean like you touched the button like oh, that wasn't enough. So you go back and do it again. It doesn't it pack the accuracy of the test. And speaking of accuracy, the Contour Next One blood glucose meter is incredibly accurate. And you deserve that you deserve a meter that doesn't take up a bunch of space in your pocket, it doesn't waste test strips, and that gives you accurate results. And you can have it. And to be honest with you, it's not really that expensive. Whether you're paying with your insurance or cash, you should check out the price of the Contour. Next One, it's very, very affordable, head over to Contour Next one.com forward slash juicebox. And check it out blogger there, you can look at other products that they have available. And even look into the free Contour Next One meter that you may be eligible for. And of course, their test trip program, pick around, there's a lot going on in that website that will help you live a more carefree lifestyle with diabetes. Last thing, please check out the T one D exchange T one d exchange.org. forward slash juicebox. This is a very simple and quick way that you can help Type One Diabetes Research right from the comfort of your home. If you're a United States citizen who has type one diabetes, where is the caregiver of a person with Type One Diabetes, you're eligible to participate. And it only takes a few minutes to do. It's 100% HIPAA compliant, completely anonymous. And your answers will go a long way towards helping people with type one diabetes to live better. And every one of you who uses my link, T one d exchange.org. forward slash juicebox will also be helping the podcast when you finish the survey. Thank you very much. Now let's really get into the meat of this conversation with Laura.

I have a couple of questions. I don't want to get far ahead without asking my questions. So first of all, I feel for you because I once had a dog kicked out of a kennel and that was horrifying. I was walking out like I'm so sorry. You know, and and I can't even imagine like what that must feel like for someone to say, Hey, you know, you need to get your head out of here because

Laura 27:17
well, that to their point, I will say they did offer in the fall. They said hey, you want to come back? Let's try this again. So at least they did offer I mean, it was Yeah,

Scott Benner 27:27
that's all cool. I just mean in that initial moment when you're when you're standing there like Hi, it's me, Laura. I'm here to pick up my kid. They're like, yeah, don't bring that kid back here. You're like, Whoa, okay. And like you said, You were like, you'd wait for it. Right? Like, and that's gotta be stressful too. It was Yeah, no kidding. And so Okay, so here we are. You've tried these things for, you know, different issues. You're wondering if it's ADHD, maybe it's sensory, maybe it's not, you get the diagnosis for the Type One Diabetes. I guess let's delve into that. And then we'll bring it back around again. So how do you how does the type one present?

Laura 28:06
At that point, he's three, he hadn't potty trained yet. And we hit started really, really working on that whenever he was home over the weekends and working at school because the school had a bathroom in the classroom. And so they would take them and you know, just peers around him would show and so we really, really were working on potty training. So it seemed like he was getting it. But he would be drinking excessively like down a drink and then want another one five seconds later, but then go to the potty. Right, you know, as soon as he finished the one. So my husband like, Oh, he's getting it. He's getting a Skittle for it. And he wants to go potty. Well, we get calls from the school. So this all starts kind of on a Sunday night, he wet the bed on Sunday night. And he ended up having to go to school the next day. And I'd put him in a pole up. But he was reading through the pull ups. And I want to say that week, because we ended up going to the hospital on a Friday on that Friday. So it was really only a week of symptoms. We ended up brought up maybe four or five sets of clothes over a two day period of time that he was at school because he went through them so badly and needed to be changed even with the extra set of clothes that you know you already have there. So it was one of those things that my husband was venting to a couple of people at work and saying, you know, this potty training is going good, but oh my gosh, he's wetting himself so much. And he had said something to one of his co workers. And she said, that sounds like type one diabetes, you need to get that checked out. So it's ironic and it's kind of a scary story that she said, I'm not sure who was related to her or she knew but they had somebody they knew that had a kid that got diagnosed, but the kid was a little younger. And it gotten so thirsty that the kid was drinking out of the dog's water bowl. Wow. And so she had told that to my husband, and he's like, you know what, let's just go get this checked out. So that all started on Sunday, I was able to get him an appointment on that Friday with our pediatrician, but she is half day only clinic on Fridays. And so when we went in, and I unfortunately wasn't able to contain him to be able to get a blood draw or finger stick, he was fighting us combative, and he's got skills. He does. Bad ninja skills. When it comes to us. He's

Scott Benner 30:37
got good footwork, he knows that a stick and movie catch you with the right cross out of nowhere.

Laura 30:44
It also didn't help the fact that I was pretty squeamish about blood. It's funny now with all of the finger sticks. And we were doing injections for a while there and pod changes and everything. I've gotten a lot better. But when she went to go do the blood, I was like, Oh, I can't do this. And so she said, All right, let's figure out something else. Whenever your husband gets off work, we can figure something else out. So I called him after lunch, he got off a little early. And we went to an urgent clinic in town and he was able to kind of help out and they tested his sugar. And it was one of those surreal moments because they were like, I think this meter is broken, because it's saying it's over 700. So it was pretty high. And so they tested him to two times to be sure. And both times it was over 700 so much that their meter didn't say a number. It just said over 700. So, yeah, we're at that urgent clinic, and they call the pediatrician and say, you know, what do you want to do this, she says, get him to Dallas to the Children's Hospital. So they bring over a crew from Dallas Children's Hospital, and he gets ambulance to the airport, which he thought was really cool. He had never flown before. And we get in one of the Children's Hospital jets. And we go into Dallas and ambulance back from the airport to children's and my husband drives because it's not a big enough plane for all of us to go. And so my stepdaughter was away visiting her other grandparents at that point in the Dallas area. So once we got there, she was able to come up and see us as well. But we actually the funny thing is, is in the amount of time it took us like I said, we live about two hours east of Dallas, my husband was able to drive, go home, get all of the stuff we needed, and meet us there in about the same time. So it took us about two hours. It's not that long of a flight. But it took us about that long to get there. Funny, we could have just driven whatever, pull

Scott Benner 32:52
them in a wagon, maybe even made it in a reasonable amount of time. It sounds like I was wondering, when you said that I thought well, maybe they were really far from where they needed to go or how there was this situation. They were just like, Hey, we haven't used this plane all day.

Laura 33:07
Let's just get it out. But thankfully, my husband's insurance. He works for higher education, Junior College. And so you have state insurance, and it covers all of the ambulance and all of the plane rides. So

Unknown Speaker 33:18
my next question.

Laura 33:22
Yeah, I saw what white guy build. I was like, wow, $40,000 plane flight.

Unknown Speaker 33:27
That's awesome. Wow, no kidding. Geez. Yeah. Oh, my gosh,

Scott Benner 33:32
thank goodness. Like, can you imagine if your insurance was like, Wait, what? No, you couldn't drove there the same time? You'd have been like, Oh, yeah, I know, honestly. We're gonna put you on a payment plan. Like No thanks.

Laura 33:45
I don't pay this out until he's 18 or older,

Scott Benner 33:48
essentially $15 a year, just until this is all taken care of. Okay, so Wow, you get to the hospital. And I mean, his blood sugars, especially for a little person. I wonder how much different that is? Probably not. But it made me wonder like is a higher blood sugar like that in a smaller body more dire than in a larger one? Or I wonder what those are that? Yeah.

Laura 34:11
So the great thing about this urgent clinic is is they cater to pretty much every need that you could ever want. They have people to come around and say Do you want a massage? You want a bottle of water? They've got all this you know, food available?

Scott Benner 34:23
They did come in on a jet. You seem important.

Laura 34:26
Well, no, this isn't the urgent clinic. And so of course, while he's there prior to us going in, of course, he's like, I want a candy bar. I want a soda. And so I'm sure that probably didn't help the situation. So it might have been a little lower. Prior to him eating all that food. Gotcha. Yeah.

Unknown Speaker 34:43
They drove his blood sugar up with the Good Eats.

Laura 34:46
Exactly. So they ended up I'm trying to think so the team that came from Dallas had, you know, this chart that they had based on his weight and the insulin that he needed and so they were able to give that to him prior To him go and hooked him up to an IV. IV was going while he was on the plane ride. It was it was interesting. But yeah, we get to Dallas come through the emergency entrance get into our room. They start him on diluted because of his size. At that point, I look back now. And I tell my husband all the time, like I wish I would have known I see the pictures and I'm like, Wow, he did lose weight. I don't even know how that's something you don't notice. You know, the circles under his eyes, things like that. I look back, you know, just kind of sad about it. But he ended up like I said he was on diluted. Once he was in the hospital for the first day, I want to say then they realized that he was going to need a little bit more. So they put him on the regular shrink. We started on novolog. And we were doing syringes because he was on quarter units at that point. And then once he got on the regular wearable to do the half units, and then they switched us over to pin on the human log. And we still did the syringe for the Lantus that he was doing. He did a morning dose of lantis. But it was hospital protocol whenever we were in that if they changed his dosage or the type that you had to stay for an extended period of time to get everything regulated. It's not the right word. But I think that's kind of what they're how they

Scott Benner 36:29
thought of it. So every time they made a change to this, they thought now you have to stay longer.

Laura 36:35
Not Not every change but change from the diluted to the full strength except that's reasonably Nova log to the human log on that.

Scott Benner 36:44
I don't understand what okay. So how long did you end up staying?

Laura 36:49
About four days? I think we were there. Three and a half. We went home on Tuesday. So we got there Friday, about midnight Saturday morning, and then left about lunchtime on Monday.

Scott Benner 37:02
You know, as I'm saying that Arden was in the hospital for like four or five days, too. Yeah. So and she was little she was too. And you know, her blood sugar was pretty pretty darn high when she got there. So I don't know how much of that is, is just good common sense, or how much of it is being careful because of how little they are and they can't talk and there's other things. By the way, before I forget this if the person whose kid drank out of the dog bowl, listen to this podcast, shoot me an email cuz Yeah, for sure. Totally get on the podcast, just in case you're wondering. I just really didn't want to forget this. Because that seems really, that really makes the point doesn't it? You know? Yep. Wow. So you guys get home. I'm interested in because you described your husband and your stepdaughter have ADHD a little bit. You don't like blood? So you guys were just I agree well trio to get involved in type one diabetes, right?

Laura 38:01
Oh, my husband was actually great about it. And my stepdaughter is fine about it. And he actually was a he worked in college as it's not a phlebotomist, but he worked at a plasma center. So he has no problem with blood at all. He could do it in asleep and probably find a vein. Even now, you know, 1520 years later, you're probably still do it and asleep. But yeah, he had no problems. And he was the one to initially do all of the doses because I just I wasn't there yet. But it didn't take long. I was stepping in and and saying, you know, this is my kid. I've got to do it for him. And you know, there's really no other option.

Scott Benner 38:43
Yeah, it turns out you didn't have as much of a phobia as you just didn't really like it. Yeah, you're able to like write that ship pretty well. Well, I would expect, obviously, no less. It's that stupid thing that you know, you hear people say all the time. Like I could never do that, like I sure you could. Yeah, yeah, absolutely good. Don't forget the hiker cut off his own arm. I'd like to make a list of people who think they can cut their arm off with a pen knife. That's a pretty short list, then all of a sudden you find your arm trapped in between two boulders and you say to yourself, ah, I guess I can't do this. I can't, because I don't want to die here. Well, that's that's pretty cool. You know, everybody kind of came together and got it together right away. What was the technology? Like? Did you guys transfer away from MDI pretty quickly? or What was your path like for that?

Laura 39:31
Um, I guess that's a relative term so quick for some people because, you know, some hospitals and NGOs require that you be diagnosed for at least six months or something. And we actually so he was diagnosed on October the 19th. And I actually just scrolled through some memories and saw that his first Dexcom he got a G six, and his first one that we answered it was on November 6, so relatively short for that to be doable. Finger sticks. Yeah. So that was that was great. And it's like I've heard you say before and many other people, we could have done MDI forever if it meant that we got to keep the G six. But once we actually got on the Omni pod, it's it's been great. But we started that his birthdays first week of January and we actually went to a waterpark for his birthday because who gets to go swimming in January. So he went to one indoor waterpark for his birthday. And he did the demo pod while we were there and just kind of kept it on see how it worked while we were in the water test. It was Yeah, good test. It worked out well. And my husband and I went in and did the sailing test with the endo. And at this point, we are still saying Dallas endo team. At that point, we're four months in, and we do the sailing test. He and I go up, he wears it for a couple of days. I wear for a couple of days and do all the settings and pretend you know to put stuff in. And then he starts it later that week. So October to January, we did an MDI and then he started Omnipod. In January,

Scott Benner 41:11
I called up pretty quickly and yeah, so his I'm assuming his blood sugars become more regulated, obviously. And what were his a once he's like through the first like, number of tests, how did it Yeah, so

Laura 41:25
when he was first diagnosed, he's at 10.5. And then we actually had our first endo checkup A month later, so not that much longer. So it really didn't decrease that much because we're still doing an MDI, we had only had the Dexcom for like a week maybe. So really not good data there. But it went down to a 10.3 the next month, but you know, progress, it's going down to a 9.4. Right? I'm trying to think right before he got the Omni pod, maybe like January, middle of January. Yeah. And then in between that appointment in his next appointment, I found the podcast and he was on the Omni pod. And we went from a 9.4 to a 7.8. So

Unknown Speaker 42:11
huge Johnson nicely,

Laura 42:13
huge, huge jump. And the great thing about it was is he wasn't having a lot of lows. At that point, we were able to catch him we were able to bump a nudge based on you know, things. The great thing about a toddler, as you know is their variance in food is pretty limited. So thankfully, he was eating a lot of the same foods. So I was able to get a good amount of data based off of that more good practice. I

Scott Benner 42:37
tell people all the time, like when, when you're really struggling, it kind of seems boring, but pick a weekend and make the same meal like two or three times in a row like you know, at the same breakfast, Friday, Saturday, Sunday, the same lunch, the same dinner. And it's a little boring, but at least you can do something, watch it happen make an adjustment, see what happens again, on a short time period. It's a way to make it fun with kids, I guess if you if you try. But it's so much easier than you know, doing macaroni and cheese today and the next day trying pizza and the third day doing a salad and like all your data is meaningless then yeah, like it's to make the next good decision.

Laura 43:16
So that's actually what I mean. I've done it pretty much ever since the beginning. But I do that now breakfast is our struggle, like most people's is. And so of course, he wants to have things that are really kid friendly, you know, muffins, cereal course. And you know, and so I'll just pick a week and say, Alright, this is what we're doing. We're gonna eat it every day for this week and try and get it better each time that we do it.

Scott Benner 43:41
That's Babel and it works right.

Unknown Speaker 43:43
And it works. Yeah.

Scott Benner 43:45
You just need you just need the repetition. Really? Yeah. So did little Mike Tyson's skills deplete as his blood sugar's came down, like

Unknown Speaker 43:56
what was fainted. So

Laura 43:57
in addition to getting the blood sugars more regulated, we were able to cut out a lot of artificial dyes, which has been tremendously helpful. Now, don't get me wrong, if he's got a school party and I go up and they want to have you know, Froot Loops or, you know, cookies or whatever, and they're totally all artificial. I'm not gonna deny him that by any means. But on the regular we do pretty natural stuff. Still hating eat things like a natural yogurt or a natural applesauce, things like that. But cutting out the dyes and getting the blood sugars regulated have definitely been helpful. Now, don't get me wrong. He's still a little Spitfire and sometimes rivals me and some of the things he says some, like, Where did you hear that? But a lot of times, it's like, oh, wait, there's a 15 year old sister. I know where he heard that.

Scott Benner 44:54
You know, he's gotta be pissed. I'm assuming you're raising him as a Cowboys fan and that would make any child unhappy.

Laura 45:00
So unfortunately, my husband would have to disagree with you on that. It's it's funny you're either are or you aren't. He's a Steelers fan. So we we root for the Pittsburgh Steelers.

Scott Benner 45:12
No kidding all the way from Dallas? Well, then I don't know what the kids problem is. I know right hold together. I'm interested about the dyes. We try hard here. I try hard here to push what I just consider to be basic foods on my family. Like I want you to look at your meal and be able to say, oh, there's chicken and butter and salt. Like, like, I didn't know what's in it, you know, I may, you know, make your own bread. There's, you know, it's flour and butter and water and yeast and sugar and not much more else. You know, what's in it? It's got a little bit of sugar in it. Honestly. I'm a fan of that. And but I never considered dies before. Well, yeah. What is that about?

Laura 46:00
So that was so like, if you open a box of Froot Loops up and you look at the side, you've got red 40, you've got yellow one, all these dyes. Red 40 was the big one that I noticed. It was kind of interesting, I would do these little experiments. There was kool aid that we did one day at school, I let him have a Kool Aid zero. And then the next day, we had another one. And so it was two days straight of having this Kool Aid zero with red 40 in it and his behavior was just crazy. I I just knew that it was related to that. Because the next couple of days he didn't have it. He was fine. I didn't get any notes. Hmm.

Scott Benner 46:47
Well, I just saw I just googled read 40 side effects, is the three most widely used culprits yellow five, yellow six and red 40 contain compounds including benzene and four. Wow, what is that word? amino bifen all the research has linked. This was cancer research is also associated food dyes with problems in children including allergies, hyperactivity, learning impairment, irritability and aggressiveness. How about that?

Laura 47:15
Wow. All right, was one of those just writing's on the wall. So that was that it just stuck in us that we've got to do better for him. Because obviously, as a five year old, he's gonna pick whatever any other kids picking out. But with the ADHD and the sensory stuff, it just hypes it up even more.

Scott Benner 47:39
Yeah, yeah, it's just compounds it right, just one issue on top of another. And, wow, okay, well, I'm glad you told me about that. That's not something I ever considered before. I don't know that I eat a lot of red food. That doesn't get itself red. But I know a lot of people do. And

Laura 47:55
you'd be surprised and things. Yeah. Thankfully, you know, with, you know, being type one, he likes to drink, drinks, water with additives, and all of your ones. They're just, you know, powders you pour in those habit. So we couldn't do like crystal like, we can do anything. But they do make some dye free ones, which has been great. He likes those and some natural ones that have come out that are flavored with like, one of my favorite drinks that he drinks is a juice box. So it looks like anything else, like another kid would drink. But it's flavored with monkfruit. But I know a lot of people have allergies to things like that, but thankfully he doesn't. But it has it has one carb and and it tastes just like a regular juicebox. So that's been a great fun.

Scott Benner 48:38
I'm gonna check my wife's food cuz she can get aggressive sometimes.

Laura 48:41
Sometimes we have to check ourselves. So we actually started eating a little bit more healthy after he was diagnosed. Not so much so for the dyes, but for a lower carb because we had heard at that point, you know, this two years ago, but we had heard that, you know, lower carb is a little easier on type one. And you know, the health benefits for us were definitely an added bonus. But we started eating kind of a mixture between keto and weightwatchers. And we just kind of kept with it. He still really not eating a lot of the things that we eat, and I know, going into it I was one of those parents, my kids gonna eat everything that we eat, and I'm not going to make a separate meal for him. Well, when he's three years old, and you cook something, he's like, I'm not eating that. You've already given him insulin, like okay, well, he's gonna get something

Scott Benner 49:31
Plus he really he blacking your eye a little bit. So you're really he's probably the sweetest little kid.

Laura 49:39
He is it's so funny this morning because he's with my parents today cuz

Unknown Speaker 49:46
No, just kidding guys.

Laura 49:49
It's me and him for the summer and he of course likes to be underfoot near 24 seven because he's a mama's boy. But he whenever I left him, he was like, I love you. You blew me a kiss. It's like, Ah, you can't leave that.

Scott Benner 50:04
That's wonderful. Isn't it? Sounds like you've got it moving in the right direction for sir. Sure. It is interesting to to see how I mean, how aggressive to not, you know, in a short amount of time is really interesting. And you do wonder how many people wouldn't think too. I mean, obviously, you could look at the diabetes, but I don't know that all of that aggression in the beginning, you know, unless he was honeymooning going into diabetes for a long time. It doesn't seem doesn't seem reasonable, just to point it to that.

Laura 50:35
But I definitely think the dyes and the ADHD were a big big part of it. And it

Scott Benner 50:39
just the diabetes on top of it definitely didn't help the situation. Right, right. Yeah, you're just adding a different again, compounding a different problem on top of it for sure. I have to tell you like you don't listen, I don't know people. Some people probably think about it fine. But when Coronavirus started, I took like one good look in the mirror. And I thought to myself, Scott, you are the kind of person who will gain weight during something like this. Right? And so I was like, let's not do that, you know, and all I did was go to an intermittent fasting schedule. And just I just eat for eight hours a day and for 16 hours a day. I don't eat so I basically eat from like 11 to, you know, seven, or sometimes it's noon to eight but that's pretty much it right there. And I'm I'm 13 pounds lighter than I was when Coronavirus started. Nice and in. But thank you and in between those times that that 1107 I do not limit what I'm eating. Like yesterday, I had like a pulled pork sandwich and ice cream for lunch. And I don't gain weight. And I was like, Huh, and I had some heartburn that has completely disappeared. And don't get me wrong. Like I'm not like, I'm not eating a Twinkie on the half hour or anything like that, you know, like I'm not I have actually in full in full. Clear To be clear, I guess. I also and I've mentioned it once before I cut out refined oils.

Unknown Speaker 52:09
Oh, okay.

Scott Benner 52:11
I've never cut anything out of my my life before like that. But so anything that is any oil that is refined or pressed with heat, I won't use anymore. So like, even like no canola, no vegetable oil, like that kind of stuff. I'm just using what am I using olive oil like, you know, the lightest kind, and you know, and only cold pressed? Yeah, I'm not putting obviously that much effort into it. I don't even know what I'm doing when I'm talking about it. But I've just cut out like certain oils. And and. And that's it. So you know, when you cut that out, you're cutting out potato chips, I guess, stuff like that. But you know, I would say that's pretty much it. Like I'm not eating anything out of a bag, I'm not having certain oils, and I'm only eating for eight hours a day and 13 past, like three or four months now. So

Laura 53:03
my husband also does intermittent fasting a lot. And it same thing, like you were saying just so many benefits to it. And I remember a couple episodes ago, you were still wearing the Pro, and you were doing the fasting and you noticed how much things were better whenever you were in that fasting state. Well, foods weren't involved, especially if

Scott Benner 53:24
you're a person who at some point is going to become tied to, you know, there's long stretches of every 24 hour period where you're just you don't appear to be using very much of your own insulin, right, you know, and my blood sugar was it super stable for those 16 hours. And it still like once in a while something would happen. Like I had a bad dream, my blood sugar jumped way up. That was interesting, you know, to see. And there were some foods that obviously were harsher than others. But when I when I called on my insulin after not eating for 16 hours, it did the job, you know, 120 back down again, you know, you'd really have to eat to get the 130 or 135. Like I pressed it one time really hard. Arden made a cake. And it was just like, I mean, there's no way to know how many cups of sugar were in this confection you know, but it was a lot of sugar. And I was like, I just need two of them. I'm like, let me see what happens here. In the name of science. Well, it really was because no kidding. The second one I was pushing down. I was like, I don't really want this, you know? And like 135, something like that. That's it. All right. So, you know, but I don't know what would happen if I was having smaller snacks throughout the day. And I guess I'm gonna get to wear one more sensor at some point and I'll I maybe will take a day and break my fasting to see what happens if it just drives you up all day long. But I think that's going to be the case, I think you're gonna you're gonna end up laying in that 110 space for hours and hours at a time instead of being in that 85 space. Yeah, I mean, listen, I'm not into obviously, if you listen to this podcast, I'm not into telling people how to eat. And I really think that at its core, this podcast is about how to use insulin. And then from there, it's how to use it however you want to eat. Like, I just want people to understand how it works so that if they choose low carb, or they choose, you know, red dye number 40, they still know how to use their insulin. That's exactly important to me, you know. So it's cool that you guys found all this out. It's really I'm trying so hard to get somebody on to talk about intermittent fasting. But yeah, I've found anybody yet like, I really want like somebody who's a I don't know, a specialist that somebody could really talk about it because I don't know what I'm talking about. I only have it. I only have anecdotal, you know, information about what's happening to me.

Laura 55:44
I think Same here. Yeah.

Scott Benner 55:45
Yeah. So that's cool. All right. Listen, we're creeping up on an hour here. Did we want to feel like Did we miss it? Oh, I guess I do want to understand a little bit about you experienced that really big drop in a one. See, yeah, what were the changes that you made that led to that decrease?

Laura 56:04
Well, at that point, it was just instilling the things that we were listening to on the podcast, bumped down our high alerts, and we're able to kind of catch things be a little bit more proactive instead of reactive, but so I didn't get to say so he's actually been at three schools prior, and he's not even in kindergarten yet. But during the summer of last summer, 2019, I took him out, because I was at home. And I wanted to really focus on getting the blood sugar's under control. And we, I took a chance, because if I didn't keep him in, there's a chance that he would lose a spot and they don't usually fill up. But if they happen to for that fall session, so he lost his spot, and he ended up having to go to another school. But it was another kind of blessing in disguise. The second school, the way they manage was the office personnel were the ones that did the finger sticks, they did the insulin giving all that and the teachers were left out of it. And I would talk to them via their phones. And a lot of times it was I had to wait longer than I needed to or wanted to for something to happen. And so whenever he moved to the third school, the one most recently which they did theirs with the teacher, because they had a much smaller classroom, I think he only had like eight kids in his class. And so she was able to do things all herself trained her had the CD from our endo taught to her. And she was amazing. I look back now and wish that I could have had her as his teacher for all four years. It was cool. Yeah. And but yeah, so she dealt with it all. But we were able to hone things in over the summer. And so his lowest day when see prior to this 2019 20 school year was about 6.2. So it was it was pretty good. We were rocking and rolling. But then Coronavirus happens. And I had my surgery. And I honestly actually haven't been back to work because of all of this stuff since February. And it's now first of July. But when we got off during that time period, I had attempted looping back in August of 2019. And I don't know if you remember this or not because Arden would have been older and the smaller doses wouldn't really have mattered to her. But the algorithms, smaller doses hadn't been figured out with like it was missing ticks here and there.

Unknown Speaker 58:48
I remember and Yeah, I do.

Laura 58:49
Yeah. So it was one of those things where if I couldn't get this setting, and loot figured out before school, I wasn't going to feel safe sending him so we ended up we did it for about a month and things just weren't going like they needed to. So I said let's pick this up later whenever they get this figured out. And so the friend that I had talked about that went to the conference, we met up, they it started looping with her two type one kids, and I had actually mentioned it to her. And they were able to get theirs figured out pretty easily because her kids being a little bit older. And so February rolls along, I'm at home, he's been home and I'm like, you know what, this is the time I've got to step in and we've got to do this looping thing, because I need to be able to feel safe with him going to kindergarten, not that I wouldn't feel safe with him going. I just don't want to feel reliant on a school nurse or an aide to have to walk in somewhere. I want it to be where it's a little less thought of and a little bit more freedom for him. So we started looping in late February, and we Listen to all the episodes with looping that you done. And the one with Kenny Fox actually was the best one, I was actually able to talk to him. And it's crazy. I don't know if you know there's or not. But you actually answered one of my questions on an ascot and Jenny about hormones about growth hormones.

Unknown Speaker 1:00:19
I didn't realize that.

Laura 1:00:20
Yeah, so our biggest struggle was going to sleep and he would shoot up, like skyrocket up moments after his head hit the pillow. And it was all growth hormone. So setting his ISF significantly lower like it's double the ISF of his daytime, it made things so much smoother. I can't tell you how many nights of sleep I've actually gotten. It's, it's

Scott Benner 1:00:49
I, I hear that from a lot of people who sleep better with an algorithm helping them overnight is really, yeah, not it's not even to be surprised by this point. It's just, it happens. And it's fantastic. You know,

Laura 1:01:01
I just wished that it hadn't taken everything to happen for us to jump on board as wholeheartedly as we did when we did. I wish we could have done this sooner. But you know, it's one of those, like I said, his teacher was great and did amazing with him during the school year. And I think the transition over to kindergarten, you know, being in public schools. When I was in the classroom, I actually, we split off into two teams of the common areas that taught I taught a history class. So anyways, we had two teams, we had a special ed team. And then we had a 504 ESL team. And so I was always the 504 ESL team. And I actually had a couple of type ones that came through my classroom over the period, I was teaching, and I look back now and I think, you know, what was his blood sugar doing at this moment? Or did this affect It's so crazy, you think back and look, you know, and they're all you know, thriving adults at this point, and they're, you know, often out of school, but it's kind of a cool look back to see how things were without knowing because I had no involvement at that time,

Scott Benner 1:02:13
I can't tell you how much I think or how important I think it is to have some time to just reflect on what's going on. For sure. And it just, you know, I talked about it, I think a lot. But when things are going by so quickly, and life's happening so fast, you're just trying to stay like just trying to stay on the map, you know what I mean? Like, I just don't want to get too lost here, like, let me get the things done, I need to get done. And to make my money, I got to clean something, I got to feed people I have to shop like you know, you have to do all these things. When that slows down a little bit, you can step back, you can really start seeing things like food dye, and you know, where your how to make your boluses work better. And I guess the real trick is, is how to find that time, you know, when we're all not locked inside, right in voluntarily. And because that most of your life is not going to be like that with I should knock on wood, we are going to get out of here eventually, right? But, but you know, like, just it shines a light on the importance of reflection. And to be able to watch something, you know, kind of thoughtfully and say, Oh, I see what's happening here, you know, and then to watch it happen over and over again until it builds in your mind. Because sometimes you see things happen right in front of your face. And you don't notice them

Unknown Speaker 1:03:31
can't see the forest for the trees

Scott Benner 1:03:32
definitely can't, you know, happens, it happens a lot. So I tried to talk about people understanding, you know, macro and micro, like, think about things from further away, sometimes don't be so close up, you missed a lot, you know, there's a it's a silly thing. But you know, they say, right, you know, you hold your hand too close to your face, and you can't see anything else put your hand and so you back away, and all of a sudden everything else is there. And that's just the It's lucky for some people, obviously, some people don't have the same kind of, you know, options in their life. But this gave it to a great many more people. Obviously, there's still people working that, you know, didn't get to, you know, they they were found to be essential. And yeah, I didn't get to do this. But for so many people, I think they're having experiences like yours and like mine really like I don't know if I would have you know, I don't know if I would have tried the intermittent fasting I have a friend of mine told me about it a year ago. And I was like, yeah, and then, you know, I didn't know it. And then I then I got pinched and I thought oh, I have to do something. And that was the thing that was on top of my sort of mental list of if I'm going to worry about my health through food again, I think this is the thing I'm going to look at next is, I guess how I thought of it. So very cool. I mean, you guys have been on a little bit of a roller coaster for a couple of years, but it seems like you're you're in a good spot now. Do you agree? It's

Laura 1:04:53
one of those kind of things. When you look back, like you said perspective, I look at our agencies and times and range and you know, it's It's been coming down ever since diagnosis. And we're in a spot now where it's more stable. I think that's the biggest key. It's the stability. So that's the peace of mind.

Scott Benner 1:05:12
Yeah, yeah. No bouncing around and keeping the time and range. Right. And you know, all that other stuff. It's interesting to me, though, that what seemed like you said, I wish this would have happened more quickly for us. But really, what was it? It's a couple of years, right. Sure. Yeah. And, and I know, it's tough because sometimes you'll hear people on this podcast who find the podcast like in the hospital on day one, and they'll sound like, wow, they never really went through any of this stuff. But just remember, if it makes you feel better than two years into Arden's diagnosis, I was still pretty frequent, quiet crier in the shower, still, you know, and her and her ANC was still like in the eights and, you know, and I didn't know what I was doing. And that wasn't even unthinkable, then that was fairly common for people. Yeah, you know, so I like it. I like that where these timelines are getting shorter and shorter, and it somehow makes me happy that two years felt long to you. Not that not that it felt long. But that it, you know, is not really a very long time. Historically, I,

Laura 1:06:12
when I look back at it, whenever he's an adult and managing himself, I'm going to be like, Wow, those two years went by, like,

Scott Benner 1:06:19
in an instant? Oh, yeah. When he's fighting MMA, there you go, probably choking people out for money in the middle of the middle of the ring. Probably probably grow up to be an artist. You know,

Laura 1:06:32
at this point, he likes to do things with his hands. He's really into Legos. And, of course, what boy isn't right. And he plays outside. And actually, the thing that I'm still working on the most is activity with loop and trying to figure out the best overrides, or if I want to set it at a higher number, he started t ball this year. And we actually have a game tonight. And so going into it just kind of put in that plan into place of how can I get him set up to be in a place where it's good to start with so that the game doesn't affect? You know, so. So working on those, I think that's going to be something I'll be working on for a little bit, especially with new schedules with kindergarten and who knows what ends up looking like if if they're going to end up in the class all together? If they're gonna have to stay during lunch? Who knows? Yeah,

Scott Benner 1:07:22
I'm just you just made me think that the Minnesota Twins just drafted a kid in the first round. Who has type one diabetes. Awesome. I can't say his name is Garrett. I can't think of his last name right now.

Laura 1:07:36
Yeah. We always try to tell Joseph, cuz a lot of times he'll be listening. You know, while we're in the car, I have the podcast on and he'll say, Oh, they have diabetes, like me. Or we've seen a couple of people in the store. We've seen an omni pod on a couple people. I have a co worker that has type one. And it's, it's like a unicorn you see are like out in public, like, wow, somebody like me.

Scott Benner 1:08:04
So I'm gonna, I'm going to correct myself here. But I think it was the Brewers. Now, hold on. Now I'm gonna find out because I'm gonna hold you up. Well, you know, I want to say is Garrett Mitchell. If anybody knows, Garrett, I want to have him on the podcast.

Unknown Speaker 1:08:21
On the podcast.

Scott Benner 1:08:22
Yeah, get him get him to reach out to me, please. But yeah, I think he was like the 20th pick. 18th pick something like that. Let me look. I mean, he went high. Like, he's gonna, he's gonna play, he's gonna get paid, like the whole, you know. So it's exciting to me that your son's starting tee ball tonight. When I can, I can think back to my son's first practice for t ball. And the other day, he was trying out for a semi pro team. And oh my

Laura 1:08:51
gosh, that's so cool. I would love for him to keep it up. I played softball growing up my husband play baseball. So we're definitely a baseball family. We love it. And he has so much fun out there being with the other kids and just the awesomeness that there's no restrictions that he can be out there just like anybody else. Yeah,

Scott Benner 1:09:08
I believe that for sure. And I think you'll figure it out too. It's not going to be baseball is interesting in practice shouldn't affect in the same way a game does. And I think you would see higher blood sugar's in baseball versus lower. If I had to

Laura 1:09:21
guess with the adrenaline,

Scott Benner 1:09:23
noradrenaline that it is activity because baseball's you know,

Unknown Speaker 1:09:27
it's well, in short spurts.

Laura 1:09:30
If practice is any indication, I'm sure he probably won't move much at all. He's he kicks dirt, and

Unknown Speaker 1:09:36
hey, pay attention. There's,

Scott Benner 1:09:38
there's somebody batting, I watched the boy pick up a bug once in the outfield, and I thought, I don't think he's long for this. We'll see. That's really interesting. Well, I really appreciate you coming on and doing this and it was lovely to meet you in Dallas. Hopefully one day I'll get to go back there again. But I mean, let's let's be honest, we're not sure All right, well, the best everybody there. Thank you very much for doing this.

Laura 1:10:05
Thank you for having me. Of course.

Scott Benner 1:10:11
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