#682 Charlotte Drury

Yea, that Charlotte Drury. The one who got type 1 diabetes a month before her Olympic trials.

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Scott Benner 0:00
Hello friends, and welcome to episode 682 of the Juicebox Podcast

I think we can all agree that there's never a great time to be diagnosed with diabetes, but one month before the Olympic trials, that's really bad timing. And that's exactly what happened to today's guest, Charlotte Drewery. I know you think I'm gonna have her on here and talk about all her Olympic hopes and trampoline and everything. And sure we'll get all that but I actually invited Charlotte on because of something I saw her going through on Instagram. While you're listening today, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin. A if you're a US resident Charlotte or with the Olympics us you know us if you're a US resident who has type one diabetes, or is the caregiver of someone with type one, please go to T one D exchange.org. Ford slash juice box right now and take the survey. When you do you'll be helping people with type one diabetes and supporting the Juicebox Podcast. I have to tell you, I thought Charlotte and I got along famously, I actually think we're friends now.

This episode of The Juicebox Podcast is sponsored by Dexcom, makers of the Dexcom G six continuous glucose monitoring system. Go right now to dexcom.com forward slash juice box to learn more, or even to get started. The podcast is also sponsored by Omni pod makers of the Omni pod dash and the Omni pod five, you may be eligible for a free 30 day supply of the Omni pod dash and you can find that out at Omni pod.com forward slash juice box. There are links to the sponsors in the show notes of your podcast player at juicebox podcast.com.

Charlotte Drury 2:10
I am Charlotte. I obviously have type one diabetes, and I'm here today to just chat.

Scott Benner 2:16
Cool. Well, it's not that obvious. I talked to a lot of people who don't have diabetes, they end up being caregivers but I take your point. Let me tell you about how I spent the five minutes before you came on. I'm your name breaks my brain the way Charlotte is spelled versus I agree how I hear it my head. And I had never considered it before sitting down. I was like, her name is Charlotte, Charlotte lot. And then I got Lou and

Charlotte Drury 2:46
every Starbucks barista has had that exact same revelation.

Scott Benner 2:49
Well, then I got lost in it. And then I was looking at your last name. And I'm like, Oh my God, our last name is weird, too. So now I'm just sitting here, staring at the screen going Charlotte Drewery Drewery, Charlotte, and I was like, oh my god, I sounds like

Charlotte Drury 3:06
if you put my name and did Google Translate and you got like the exact pronunciation of each phonetic letter.

Scott Benner 3:12
Exactly. That's exactly right. Because when I think of it, your name Charlotte. And I don't consider how Drewery is, is spelled. And then the more I said Drewery I started saying it wrong. And then I freaked myself out. I stopped thinking about it. So

Charlotte Drury 3:29
then the entire word itself lost its meaning and then you question the meaning of life and yeah,

Scott Benner 3:34
where do you I fell down that sort of like bizarre psychedelic rabbit hole. I was like, her name doesn't make sense. But anyway, great. Marry a guy named Smith one day or something. I think you could really straight this whole problem out. Perfect. How old are you, Charlotte?

Charlotte Drury 3:52
I am 25. But I'll be 26 in two weeks. Oh, happy

Scott Benner 3:56
birthday. Thanks. And then you're gonna see me writing. I don't usually do video with most people. So now Charlotte's watching me to make the podcast and I'm suddenly aware of myself,

Charlotte Drury 4:05
making them very nervous. And in fact, that actually brought a magnifying glass. So I will be holding that up the whole time. I know you guys are listening. You can't tell but I'm just worried. I have I have this unlocked.

Scott Benner 4:15
I'm just thrilled. You don't know where my hairline used to be? You have nothing. You have no perspective. So you're 26 How old were you? 26 and two weeks. How old were you when you were diagnosed?

Charlotte Drury 4:28
I was 24. But it was about almost exactly a year ago.

Scott Benner 4:32
Okay, so you've only had diabetes for about a year. diagnosed. All right. Interesting. So when you first started thinking something was wrong, what were your symptoms?

Charlotte Drury 4:45
Um, well, I've been an athlete my whole life. And I was just kind of used to a certain level of performance. And over like the last or not the last year I guess starting two years ago, I kind of started noticing a decline in training and it was just So sudden and really hard to keep up and, you know, chalk it up to the pandemic and just stress in general. And then after about a year of that, noticing that I just felt couch lock fatigue, moody, unhappy. I didn't notice that like dry mouth having to go to the bathroom all the time, until looking back on it, because I just assumed that I was working out so much that I was really dehydrated. But yeah, those were really my main symptoms, and it was really just falling behind in sport.

Scott Benner 5:32
Okay. I guess when you perform at a higher level, was it obvious sooner than you think if it was just you, like, you know, not able to walk your 30 minutes on the treadmill, like after work like most of us attempt to do, but you know,

Charlotte Drury 5:47
I do. And I don't, I think it's kind of a double edged sword of, because I was working out so much and performing at such a high level, my body kind of kept this level of fitness, throughout the physical decline that diabetes was getting or untreated diabetes was causing. And then the other side of that is that I think I might have not noticed at all. Or notice the physical decline if I wasn't trying to push myself so hard. So it was like maybe I just was able to push myself harder for longer.

Scott Benner 6:18
Do you think your body was at a level where even though the decline was significant? You were able to kind of power past it? Yeah, and definitely. And that's the

Charlotte Drury 6:27
mentality of elite sport. I think it's like, Oh, you don't feel good. Try harder.

Scott Benner 6:33
Yeah, I know my son wants. He plays baseball in college. He wants twisted his ankle, it was purple, and twice the size it should be. And he says to me, I think if I wrap this I can play.

Charlotte Drury 6:44
Oh, yeah. I totally hear that. I broke my ankle. And I still tried to compete.

Scott Benner 6:50
Like I say, I said, I don't think we're going to do that as the one we're gonna we get this fixed up first. But it's yeah, it's also tough, because you spend so much time I think people probably think about it much. But you know, the performance of your sport, or the, you know, or the game, whatever it ends up being is such a small percentage of the actual time you spend working towards it. And, you know, it's hard to it's hard to give that away, when you've put nine months or a year into this idea that you're going to play in a nine inning baseball game. 50 Oh, my

Charlotte Drury 7:24
God. Yeah. Preaching to the choir. Like, my routines. So for trampoline, because I'm a trampoline. It's my routines are 20 seconds. And I trained from when I was three years old in gymnastics to make it to an Olympic Games, where you compete for 20 seconds,

Scott Benner 7:40
right? Did you ever think about it cognitively as it was coming up? Like what am I doing? Oh, yeah. Like, because if we put this in other context, you would not do this?

Charlotte Drury 7:53
Literally not? Absolutely not. Are you like, I mean, I have to like, look at myself in the mirror and be like, You're crazy. What what are you thinking?

Scott Benner 8:05
I'm going to ask you later about because I am interested in what drives you to make a decision like that and to stick with it. But okay, so you have this this. This kind of left down of your physical performance? Do you end up going to a doctor? Do you tell a parent a coach, how do you proceed?

Charlotte Drury 8:20
Yeah, I went to my doctor because we, I had attended a national team training camp. And it was like our first camp back since pandemic, it was supposed to like kick off the year leading into the Olympics. And I just was getting my ass kicked I junior athletes that were doing better than me and couldn't get through teams that could do anything. I was absolutely miserable. And on the way home, I was like this is beyond just being mentally burned out. This is beyond just falling behind and getting older and really hard sport. Something's wrong with me. Like I fully had that penny drop moment of something is wrong. I don't know what it is, but something's wrong. So as soon as I got home, I landed, I called my doctor. She ordered some bloodwork got it done right away. And then she called me that evening, and was like, surprised. Do you have diabetes?

Scott Benner 9:14
No, I don't. Because Wilford Brimley has diabetes, and I'm not like him at all. And I don't understand this unless you have it in your family.

Charlotte Drury 9:22
No, nobody, not a single person. My little sister does have celiac. So that is the autoimmune kind of similar, or like,

Scott Benner 9:31
yeah, no, I was gonna ask you in a second if there's any autoimmune in your family. So trust me. Yeah, that's the really the only thing Okay, no, thyroid, anywhere. Nope. Here's one. I liked it.

Charlotte Drury 9:42
Like, I think maybe like a cousin has a thyroid thing.

Scott Benner 9:47
That counts. Okay, cool. It counts. Yes. There's like an aunt like after Christmas dinner runs to the bathroom for like a half hour stomach gets upset anything like that? I don't think so. A lot of times, it's still There's people have celiac, they just don't know they do. Really? Yeah. And it's just they think they say things like, Ah, my stomach doesn't like me like, Okay, does that

Charlotte Drury 10:09
also doesn't like me, but that could have been the bagel and ice cream and pizza.

Scott Benner 10:14
Yeah. It's interesting. You said about getting older when you're young because you're you're 24. At that point, you're like, maybe I'm just getting older. Again, my son said to me, this spring is a spring training was getting going. He's the senior. I said, How's it going? He goes, I feel old. And I was like, yeah, he goes, he's like, like, the rust is breaking off, and I'll be okay. But he all he did was lift through the offseason and hit, you know, inside. And he just said, he's like, I just, I see some of these younger kids rolling around. And they just, they don't show up, like creaky the next day, like I do. And it took them a couple of weeks. And he sprung back. But he's like, I feel old. It was weird to hear a person say that to me.

Charlotte Drury 10:54
I mean, that was like, fully my mentality in that year of training, undiagnosed, was, Oh, I'm just past my peak. Oh, bummer. I'm just not that good anymore. And given a little bit more time being healthy, I think I totally would have gotten back to 100% been, like back to fighting for him. But by the time I was diagnosed, it was only a couple of weeks until Olympic trials and a couple of months until the Olympics, so it really wasn't enough time to kind of start up and build all that strength back that I had lost in the last year. It did my best, but definitely a lot of it came back, but not all of it, which is kind of a bummer. But

Scott Benner 11:38
I hear you. Yeah, listen, I just, it's hard. I just had to have knee surgery because I woke up one day and my knee hurts. So don't complain. I wasn't bouncing on anything. So you, you get this news from the doctor? Are you training somewhere alone? Are you living at home? Or are you near family or friends?

Charlotte Drury 11:58
No, I was actually just living with my partner. And my parents had left and moved out of state like two days before I was diagnosed. So it was really just me and my partner. And then obviously, my support system in the gym, which is my coach and teammates and stuff. But through the pandemic. I mean, I was training by myself. So it was just my coach and I. So my circle was really small.

Scott Benner 12:20
So what does your I mean, how do you know what your blood sugar was when that bloodwork went back?

Charlotte Drury 12:26
My agency was 14.6. I don't know exactly what my blood sugar was in that moment. But I do remember pricking my finger like right after I was diagnosed like a couple of times, and it being in the six hundreds.

Scott Benner 12:38
Yeah, that's crazy. You mentioned that it's possible that it was going on for longer than you knew. Looking back, what do you think was going on?

Charlotte Drury 12:47
So I had suffered a couple of injuries in the late months of 2019. And they were nothing major major. I mean, I guess one of them was pretty major had a really, really bad concussion that, you know, took me out of school to get a training. And that took a super long time to heal. The same thing is like I had a tear in one of the ligaments on the top of my foot. And it just was not healing, it was an injury that should have taken, you know, a month to kind of clear up. And it took three, four or five months before I felt like it was like anywhere near normal again. So I was healing really slow, which looking back. That was before I was even having a like tangible decline in performance and sport performance. But my body was just struggling, I think.

Scott Benner 13:39
Yeah, no, it's completely. I mean, there are people who, I mean, some people have Lada, you know, type one and a half, and it takes years and years and years of like this slow, slow decline. And, you know, it's not, it's not crazy. I mean, still a quick onset with type one is common, right? And quick, could be a couple of months or, you know, etc. But I hear you it happens so slow, and you don't see it happening, you know, what was the Yeah, and

Charlotte Drury 14:04
you just explain it away. You know, you just, you just come up with all the reasons of why you're fine. Like, it takes a lot to get to that tipping point to think oh, you know, maybe something's wrong.

Scott Benner 14:19
Well, my daughter was two and she was diagnosed. And she had just switched from bottles. So when she would have these incredibly heavy diapers, we'd be like, Wow, because because she's drinking so much with our cups, like we were, we were proud of her. Right. And thinking, oh God, where we like where she dehydrated before because look how much she's drinking now and you just, you're just not Yeah, exactly. You explain it away. Yeah. Because surely they think it would be a long unhappy life. If everything that happened your brain ran to you know, I probably have diabetes, or oh my god, right. You know what, this probably is arm cancer. You know, like, it's like, you know, like so like, I think it's a it's a protective measure. In some ways. It just ends up in this scenario becomes dangerous if you don't pay attention to it. What? What if any technology do you leave the diagnosis with?

Charlotte Drury 15:10
So I walked out of the doctor's office with a long acting insulin. That was it. Oh, no Anna and a finger prick her finger meter. I call it my finger picker. I don't think that's actually what

Scott Benner 15:21
it's called. Call whatever you want. I don't care. So you're just left with like a Basal insulin? Do they give you nice syringes?

Charlotte Drury 15:30
Or a pen? They gave me a pen and a sample of four needle heads.

Scott Benner 15:36
Okay. And let's just call it your picker. And but a meter, you gotta meter and test strips got a meter? And yeah, and a way to make a hole on your finger. Yep, actually got three things. You got test strips. That's the picker part is a picker, which I think is called a lance. Yeah,

Charlotte Drury 15:53
I agree. Since I was learning so much at the time.

Scott Benner 15:57
Charlotte agrees I've made it it's called Lance. Why thank you. How benevolent

Charlotte Drury 16:03
petition to change it to prickers. I just there was so much to remember at that time. And I think whenever I needed my picker, it was I was either low or really high, my brain wasn't working. And I would just point and be like, I mean, I need I need the pricking thing.

Scott Benner 16:28
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it stuck well also, I mean, I guess not for nothing, not the diabetes doesn't invade everyone's life and put your real life on hold for a minute, but your real life was you thought you were going to be in the Olympics, right? Yeah. So it wasn't like you couldn't go to English. And you were like, Yeah, let's make that up next semester. So you have like, your big time constraint, lifelong pursuits. That somebody's like, hey, guess what? Those 20 seconds you've been praying for me? Yeah, maybe not. And so maybe not. Yeah. And that's in your head, too. Did you then what did they do give you you have to make an appoint with an endo. Because, I mean, you're just doing Basal. You weren't Bolus. Yeah, it

Charlotte Drury 21:06
was honestly like a disaster at the start, like so because I'd seen like, I saw my primary care and she's fantastic. I've seen her my like whole life. And she was like, You need to come into the office first thing in the morning. There's like an endos office connected to my primary care office. So I went into there, but the endo was like, you know, booked out for months, and you can't get an appointment. She literally just walked me into the office and the nurse educator or nurse practitioner or some somebody in the office was just like, oh, okay, like, well, here's some insulin, take 10 units prick your finger. By

Scott Benner 21:44
you've had it for a year. Now you realize that's plenty of information. You're fine. Yeah, no, I'm fine. I'm doing good. See what happens and listen, if you faint. Get your printer and get your progress your blood? How long? How long did you live like that?

Charlotte Drury 22:01
It was only it was a week. So I think that was maybe like a Monday. And then the office? And like, Go, Dr. PERIES. My primary care. She was like, No, you're gonna get her in this week. You are going to get her in. Yeah. And the office was like, well, we'll try. We'll try. And she. I was literally in the doctor's office that morning. Sobbing and then they brought her in because I was so emotionally distraught. And she was like, You're gonna be okay, it's gonna be fine. And she looks at the nurse in the room. And she goes, you're gonna get her in and just like death stares her. And then it's like, well, we'll try it. And she goes, No, you're gone. Get her

Scott Benner 22:42
to kill her on your side once. And I was like just just shriveled up in a corner. Like, yeah, yeah, no.

Charlotte Drury 22:54
I think I was like, snuck in on like, a Friday. So it was maybe like five days of me just try not to eat a carb, and learn as much as I can and reach out to anybody in the world that I know that has type one. Yeah. And yeah, I mean, that first week, those first two weeks and even after seeing the endo for the first time, he just upped my basil and actually still didn't prescribe me a fast second insulin. And it wasn't until I think the following week that I was doing like virtual appointments with the nurse educator in the office where they teach you everything. And she was like, you really need a fast acting insulin. I was like, I don't know a lot. But I know you're right. I heard that. So she called the doctor. And then then he prescribed it. And then I got it. And then I got started on it. And that's when I really started to feel better and

Scott Benner 23:41
get directions from them about how to use it, or were you figuring it out online? Or?

Charlotte Drury 23:46
Um, she did give me some directions, but I was so confused. Again, horrible, really horrible. Oh, my God, she doesn't

Scott Benner 23:57
know let's get better at your job. Have some pride

Charlotte Drury 24:01
honestly do better. Um, no, I was like, trying to figure it out online. But again, all those words are new, and everything's just so new. I really just needed somebody to very simply break it down for me. And she was the nurse educator was really cautious and telling me this or that or this or that? Because diabetes is so personal, which it absolutely is, once you have it figured out. But there are some like baseline rules. You just kind of need to know,

Scott Benner 24:32
Charlotte, I have a series that must be over 40s It's got to be over 40 episodes long. Now. There's basically five to 10 minute episodes that are called defining diabetes. It's every term that you hear. And it's not. It's not read to you like out of a definition. You know, like here it is from the it's Look, here's Bolus. This is what Bolus means. Here's what it means. Technically, here's what it's gonna mean in your life every day. It's a fun, you know, I pride myself on making the Very listenable diabetes content. And so it's a fun conversation where when you end it you go I know what Basal means now. I know what yeah, you know, the K means now like, because to your point people are yelling a bunch of words that you know, context for them whatsoever that and you're scared. Yeah. And your blood sugar's probably still vacillating all over the place, and your life is changed irreparably. And you're worried about your 20 seconds. And you know, like, like, every other thing that happens, I, if it makes you feel better when my daughter, my daughter was diagnosed, a nurse came in the room, fourth day, I think, and said that they were going to teach us how to count carbs. And then she started adding fractions, and I just, I just started crying. Like, like, just like crying, and my wife goes, you're gonna need to come back and she left the room and one of the only times Charlotte, your youngster, but one of the only times my wife's been nice to me, like the last 30 years, and she turned to me, she goes, you're okay, you know how to add fractions. And I said, I'm gonna kill her. That's what's gonna win. And I didn't mean the nurse. I met my daughter. I meant I'm gonna mess this math up. I'm gonna kill her. I know I am. That's what it felt like, in the moment. Yeah, I lost the ability to add fractions because of the pressure. And in some ways, this podcast exists because I don't count carbs. And I don't do things the way other people do. And, you know, inside of this podcast is how we my daughter's a one C is, you really don't know this podcast. I know. My daughter is a once he has been from five, two to six, two for eight years. Wow. Any diet restrictions. I know how to use insulin, and I know how to talk about it. I just don't know how to count carbs and add fractions when you need.

Charlotte Drury 26:49
Tough. I remember that day in fourth grade vividly. Yeah,

Scott Benner 26:52
was terrible. And Mr. Chabot? Let me be honest with you. While we're calling people out. Mr. Cicala, my fourth grade teacher was a horror, okay. He hated me. I know he did. I know you're allowed to hate children. You just don't talk about it. This man did not like me whatsoever. Thought I was sarcastic. I was probably a little fat kid, which, you know, in this in the seven days, and I kind of get any respect there. There's no like personal choice. But I've done. It's not like that's the body's comfortable in there like Scott, stop eating, you know, a shame the four year old for certain, right? And so every Friday, he'd give a math test. And it was 100 quick questions, where he you'd take a piece of paper was one to 100, a little pencil, and he'd go two times three, and you had to write six and move to line two, because he was already saying five times eight. And they were simple.

Charlotte Drury 27:40
I would get this is when you discovered what anxiety was,

Scott Benner 27:43
I would get most of them wrong. And then what would happen is you had to write each 110 times over the weekend. So my entire weekend was spent writing out 1000s of multiplication things over and over again, while my parents yelled at me. Like, how could you not understand three times five is like, well, I know it now that you're saying it, you know, and like and so I think he enjoyed torturing me. I don't even remember why we're talking about that anymore. But

Charlotte Drury 28:10
I would agree with that. We're unpacking childhood trauma. We're here we're here for at all

Scott Benner 28:14
can I tell you? He's probably dead. And I'm okay with it.

Unknown Speaker 28:20
C'est la vie.

Scott Benner 28:21
Were there were people who loved them. But he was very mean to me and I don't have any I have no remorse.

Charlotte Drury 28:26
You know what? He wronged you? And that's okay. You can you can feel what you feel

Scott Benner 28:30
sure you have no idea how bad I am with names. That I know that man's odd last name still means he really? He tortured me? Yeah,

Charlotte Drury 28:38
you're gonna remember it for the rest of your life.

Scott Benner 28:39
So anyway, so sorry, let us just segue away from that. Because you're on the podcast. I don't imagine you know why you're on the podcast. I know why you're on. And it's not because just to let people know to talk about me again in fourth grade when you all send me emails a year ago, you should get Charlotte Drury on the podcast. She just got diabetes. She's trying to be in the Olympics. You make me not want to do it when you do that. I don't like doing what everybody else is doing. It makes me uncomfortable. Because all I can think I everyone's going to interview this Charlotte girl. And I don't want to just be like it'll get lost in the mix. I'm like, No. So you weren't on a year ago because of the people who wrote me to ask to have you on. I know it's backwards. You're on today. I'll get a list of their names. Yeah, you will you should exact your retribution to as I've done just now with Mr. Cipolla. There's a strong possibility you're episode's going to be called Mr. Scola, by the way,

Charlotte Drury 29:36
support that through and through. In fact, I think we should trademark his name and started.

Scott Benner 29:42
Yeah, I want to make money off his ass. That's a good idea.

Charlotte Drury 29:46
So in your trauma dollars,

Scott Benner 29:48
the reason I reached out to you is because somebody tagged me in something on Instagram, and I got to watch you have a difficult moment in public. And I saw you You like every other person with diabetes and not like a bouncy girl? Or like, I don't mean to be like derivative. You know what I mean? I'm sure what you do is really cool. I do I do. But I wanted to talk to you about that. That's why I asked you on why it took me 25 minutes to get to it. There's no way to know because we took the witness a long road, we've been chatting, and I have not even asked you yet about what you think of those kids on tick tock, who bounce hundreds of feet in the air in their backyard trampolines. As I walk in and go, That kid's gonna die. That kid's gonna die. like maniacs they're gonna die, right? Yeah. Yeah, let's get away from that. Seriously, if no one's seen those videos, you have to find them. But that's not what I'm talking about. Like they literally I mean, am I wrong? Are they going 50 100 feet in the air?

Charlotte Drury 30:48
easily, easily. They're insane.

Scott Benner 30:51
And there's other spinning the entire time. Yeah, they do more

Charlotte Drury 30:55
flips and like one bounce than I do. And like for sometimes,

Scott Benner 30:59
I don't even understand how they're not dead when they just hit the trampoline. Because I

Charlotte Drury 31:04
also agree with that. I genuinely am baffled by those kids. They are maniacs. I think they were born with rubber bones. I and like, God bless them the day their prefrontal cortex fully develops, and they realize what they've been doing for the last 15 years has been insane.

Scott Benner 31:20
I blame the drugs, Charlotte, I don't know. I don't know how you would do. I mean, I'm being honest. Okay, so can you tell me a little bit about like, I think you did. I'm not the social media maven that maybe I should be. But I feel like you were just asking questions of people and having conversations through Instagram. But what led you to that that moment?

Charlotte Drury 31:46
Yeah, I think. So I actually did talk about this a lot with some people that are really close in my life, and then with a bunch of people on social media have. I've been diagnosed for a year now. And in my head, that kind of feels like a long time. But with diabetes, you know, you're looking at the rest of your life. The year is such a, it's a fraction of the rest of your life. And it was really hitting me that I was having all of these like identity changes of oh my god, I've always classified myself as a healthy person. Am I a healthy person? Am I an able bodied person? Am I capable person? Am I an independent person, all these things that I valued. And for like a solid week, I just slowly started having this unraveling this like slow brewing meltdown. And then one night, it was like, maybe 10 o'clock at night, and I'm in bed, and I'm just like sobbing, and having this meltdown. And it all being diabetes related and diabetes focused, and not knowing who to talk to you about it. And then I was like, well, there's actually like, 1000s of people that I can talk to about it right now. And selfishly, I really need support. So I posted it on my story. And I was just asking for support. I said I was struggling, what helps you when you guys are struggling, and it was just a q&a. And I got 1000s of messages in reply that were so kind and thoughtful and helpful. And I felt seen, I felt validated. I had new ways of thinking and people were shifting my perspective. And because they were so insightful, and a couple of people in those questions had asked if I could also share them because they were also struggling. So I was like, what a great opportunity to now share these answers with everybody else that's also here in this community. And so I did and it was like a really cathartic experience. It took me a good 24 hours to be able to go through and read all the questions without just crying the whole time. Because again, I was really fragile in the moment. And they were really helpful. They were hitting the nerves that were raw. And it was nice, and I was everybody always talks about, you know, you need your community and you need the diabetes community to kind of prop you up when you're feeling a little weak or a little shaky. And they were right. I mean, I felt really not better. I felt better, not fixed. Obviously not completely through that like slump, I'm still definitely in it, but a lot better. And I think after that day, I started to kind of get out of that burnout, depressive, not depression, because it's not depression right now. But the depressive slip like slope.

Scott Benner 34:30
So I mean, it caught my attention because I mean, surely I don't have diabetes. I should knock on wood because I'm probably gonna die. I mean, it's gonna be iron. It's gonna have to follow me at some point, right? I'm gonna have to climb on here one day be like, okay, it happened. But for the moment I don't. I make this podcast because my daughter is who's 18 In a couple of weeks, has had it since she was two. I started writing a blog before blogs were a thing. It helped people and I liked that it help people. At some point, I recognize that it was all raw nerve blogging, I was just like something would happen. And I would write about it, and people would come in and go, that happens to me too. And then it would make them feel better that it happens to someone else. I saw the value in it. But there was just one day where I thought, like, my conscious thought was, it's nice to know you're not alone at 2am, right? Even though you're alone in your home, even though you're alone in your home, somewhere, countless people are up going, Oh, my blood sugar's low, and they're drinking a juice or they're worried or they're eating their kitchen or whatever, there's comfort in that. And I started thinking, it's not enough to just offer comfort, like, what if we could stop them from being low at 2am? Like, how would that be? And so I started to focus the blog more about that. It's how it kind of ended up translating into the podcast. But as much as I could see the value in it through the blog, the podcast is by magnitudes, much bigger than than the pot than the blog ever was. And now I'm actually speaking to people. And it always strikes me because in my heart, the podcast is about management. But it's, it's not really. And it's got these facets that some of them I'm less aware of, because I don't have diabetes. But when people start coming on and tell these great stories, and they're sharing their lives, and at some point, I kind of ham fisted ly go. So how does the podcast help you? Because you know, I need my moment. You understand? Yeah, I mean, after you land on the trampoline, you stand there for a second because you're like, Yeah, someone ought to clap right now. And but anyway, but seriously, I try to what I really am trying to do is connect their stories to how the podcast helped them. So hopefully, it'll help somebody else. But, but the Joking aside, so many people say that it's the community aspect of the podcast, that's the most valuable part for them coming on every day and listening to someone else tell a story about their life. And I always knew it was important. I never could connect it completely. And so you had this opportunity. I assume your Instagram following grew mightily when you got to type one. Yeah, truly, now there's crazy community around type one diabetes that almost doesn't exist and other disease states. And so do you think? Do you think you'd still be in that space? If you didn't have those people to talk to?

Charlotte Drury 37:26
That's a really good question. Um, no. However, that's only because I have been through a lot in my life in sport, and with this diagnosis, and I have been forced to figure things out on my own before. And I am confident in my ability to figure things out and to get through things. However, did I arrive there a lot quicker and a lot more comforted and comfortable, because of the community. Absolutely. But I thoroughly believe that every single one of us as individuals, because we have to, can figure it out. However, we don't have to do it alone. We don't have to. And the fact that we have community makes it so much easier. And because all those people reached out and shared their their tidbits of information and what they've learned when they've been in these tough spots, probably by themselves as well. It just made it that much easier. They just showed me the way out.

Scott Benner 38:35
My Week is lining up so strangely. So you're 26. Last night, I interviewed a 26 year old girl who talked about how she had a very has an had a very tough life, and was not raised to find her way out of it. And she's doing it anyway. Right? She's finding these tools. And she's not just she's not just saying this is hard. Somebody helped me. She's figuring out how to help herself. And then she's dragging herself forward. And then looking ahead and figuring out the next thing and dragging yourself forward again. And I just had Sorry, I was just having this conversation like 16 hours ago with her about this thing. And then you said the same thing in a completely different way. Like we all have the capacity somehow and I think I'm looping in her story, which will come out much later than your so people won't have a lot of context. So I don't know what you want from me, but I just want to just hold it to you now. So it because it would be easy to look at you and go Oh, sure. The Olympic girl can do it. But I'm not that. Like I I think that sometimes like there's no reason I don't have a ton of famous people, as many as I could. Athletes, as many as I could, because they look like Superman sometimes. And you're like Oh yeah, sure. Superman dedic Great, what am I gonna do, you don't even like I can't jump up in the air. So like and, and at the same time, I think there's an amazing value in hearing that you a person who knows how to work really hard for something over extended amounts of time, which is a real skill. And a person who doesn't have nearly any of your conveniences, like, like coming up, how you both came to the same conclusion, you're gonna you're gonna get there differently with different ideas. But, I mean, it's just a very human idea. Like, we all can do something you don't I mean, and then wait and see what happens next, there's more, and there's more, and you could just kind of keep going. It's, you know, I mean, I don't know, I don't think of life as like a work to get to a party, I think of it is. Do my best today. So I'm gonna do my best tomorrow, you know, kind of thing? Yeah. Can you talk a little bit about what some of those people said that you found helpful in the moment?

Charlotte Drury 40:57
A lot of it that has stuck with me, especially even today of like, reframing how you think about what you're grateful for. Because everybody's always like, oh, make your gratitude list, you know, list five things that you're grateful for. And it's like, well, yeah, I'm grateful for five things, but I'm also really ungrateful for a lot of other things.

Scott Benner 41:18
My Netflix, being free is not overpowering the diabetes thing.

Charlotte Drury 41:24
Spring is not fixing the fact that my pancreas is broken, right? But it was reframe what it is you're grateful for. So you can hate this disease, but you can be grateful for life. Okay, I can do that. I am grateful for like, I am grateful for living, and I hate this disease. Another person wrote, whenever I start to really resent my broken pancreas, I start making a list out loud. And I list all the body parts that are working, and are doing their jobs, and that allow me to live my life. And so I also started doing that. And I say, thank you skin from for protecting me from the sun today. Thank you brain for helping me read this book today. Thank you eyes for working so well. Thank you nose for not being stuffy today. Like we should really think our noses more often for not being stuffy when they're not stuffy. And like, that was really impactful advice for me and putting gratitude in a lens that I felt like I could reach it in that moment.

Scott Benner 42:26
Can I ask you before you move on before you move on? Yeah, I don't want you to lose your place. But did you grow up in such a way where things worked out for you? No, no, the things work? Can you take take training out of it for a second? Did things just work out? Like the sofa was clean? The house was nice. Like that kind of stuff? Yeah. Right. Yeah. Expect and then you grew up. I know, this sounds crazy. I am really old when I say this. But the internet and cell phones change people's expectations of getting what they want when they want it. Like that idea. Like I think the example I used the other day talking to somebody is when you watch a TV show and you like I don't know who that is in the background. You just pause it, you look it up and like, oh, it's Joe Montana. Joe Montana is a character actor. And you and you know all about Joe Montana, his life at that point. Yeah, that happened to me when I was 26. I'd have to go to work and be like, Hey, have any of you ever seen this TV show? No. It's on Tuesdays at eight. If you could watch it, I just want to know who they like, there's no, like, I'm used to not getting the answers to my questions. And I grew up incredibly broke. I was used to things not going well. And I do wonder sometimes how that how that informs how I feel and what I do next, when things go wrong, because I almost expect things to go wrong. You know, and so when I do, I'm like, Okay, well, now we'll take care of this, you know, and anyway, but you also see you have this duality, where you grew up reasonably well. And at the same time, put yourself into something incredibly difficult. That was probably constantly knocking you down. Yes, yeah. Okay, so these both at the

Charlotte Drury 44:03
end of the day, I did have, you know, a safe, clean, happy home to always return to, right. Granted, I was there at night and sleeping, the majority of my day was in the gym, and the majority of my identities in the gym, but I always had a soft place to land. Right? So there's, there's that and that has definitely been formative to me in kind of giving me that like, underlying assumption that I'm always going to be okay. I will always figure it out. But I'm not scared that you know, I'm going to be on the streets or I'm not scared that my family is not going to be there for me one day, you know, like, I have that sense of strength and stability in my life that I'm so grateful for. But when it comes to sport, like oh my God, not a single thing, everyone right and this has been a therapy topic.

Scott Benner 45:00
Hey, you know, you just named your autobiography. Unless it's unless it's a like a colloquialism that people use that I've never heard before you just named your autobiography,

Charlotte Drury 45:09
a soft land, a soft place to land,

Scott Benner 45:13
see how it works? plane and then life? And I mean, I'm just saying it's a metaphor. It's all right. Honestly, yeah, I'm not even. I'm not even taking that for the title. Because that's for you. Although I would like to thank you at the end of the book, that's all

Charlotte Drury 45:29
you can be in the dedication.

Scott Benner 45:30
Yeah, that would be nice. Tell me about that, about putting yourself in terribly difficult situations on purpose. And then those situations torturing you. And you could just look at them and go, Hey, you know what, I'm not doing this anymore. But instead, you show back up every day and let it punch in the face again, what what's, what's wrong with you? Let's talk about what's wrong inside of your brain that you would put yourself through?

Charlotte Drury 45:56
I don't really have a good answer for that. Because I'm also like, Why did I do that? When I looked in the mirror in the morning, I was like, I am miserable. I hate this. This is horrible. Let's go to it. I think I think it was so ingrained in my identity of this is who I am. I am somebody who shows up. I am somebody who does the sport. I am somebody who does hard things. I said I was going to do this, and I'm going to see it through. Because I am somebody that sees things through. However, I have recently learned the value of quitting. And I have taken away the negative connotation that quitting has. And I think everybody should quit something in their life. And it's only just started to kind of unravel a little bit so that I can live a little bit of a softer, kinder, not so intense life. Yeah, I don't know. If you have an answer for me of where that came from, that would probably save you $1,000 in therapy. Well,

Scott Benner 46:57
listen, I don't know your parents, but that's where I would start and the let's skip past them for a minute. Are you incredibly competitive? I was yeah, I totally was more with yourself, or with the thing you were doing? Did you care more about the score? Or about doing it? Right?

Charlotte Drury 47:14
Doing it? Right? Yeah, my son. The thing is, is if I didn't write the score was good.

Scott Benner 47:18
So my son can leave a game that they lose nine to nothing, and have three good at bats and make a catch. And he'll be like I was I did perfect today. Like, you know, and he's more competitive with himself than he is. I think there's a world where my son could lose every baseball game he's ever been in, and still be somewhat fulfilled by it, although it would become a drudgery at some point. Right. But I'm always interested in that if people are like they do they want to win, or do they want to be good?

Charlotte Drury 47:49
Yeah, so I. So I think it's only slightly different because this is an individual sport, and the success or failure hinges solely on me and what I do

Scott Benner 48:02
same thing, so

Charlotte Drury 48:04
yeah, if I. Yeah. Yeah. So there's been times where I would have you know, won a competition but been a little bit disappointed that one thing didn't go right. And I would get hung up on that one thing. So I do think that it's definitely me being my biggest competitor.

Scott Benner 48:25
Are you a completionist? In other places? Do you start? Yeah. Do you start a movie that you don't like and watch the rest of it anyway?

Charlotte Drury 48:33
Do you know I don't like movies. That's a weird fact about me.

Scott Benner 48:36
That's okay. Pick something different puzzle book.

Charlotte Drury 48:40
Yes, I'll finish a book I don't like okay.

Scott Benner 48:43
All right. Well, here's the tough question. How old were you when you realize you didn't like is it tumbling? I'm sorry. This is the this is the thing. Everyone's gonna like the people who listen are not going to be surprised by this. But I told you right when we started, I'm gonna say something to you. You might find shocking. I don't know what sport you do.

Charlotte Drury 49:00
That's fair. I think that's refreshing. Also, it's trampling nobody knows what sport I'm doing.

Scott Benner 49:06
I figured it out as you were talking, but the first time you said it, I went Oh, okay. Cool. So we call trampoline trampoline. It's not trampolining.

Charlotte Drury 49:16
Correct. Correct. Trampoline is both a noun and a verb.

Scott Benner 49:19
Okay. And so let me ask you then How old were you the first time you realize you were better at it than other people your age?

Charlotte Drury 49:28
I'm on it. Honestly, like it took a really long time. I so I did artistic gymnastics from three till 13 Quit artistic gymnastics nursery thinks they're so burned out and realized that I wasn't gonna go to the Olympics for it. And I was like, that's not worth it. If I'm going to be working out five to eight hours a day to not go to the Olympics, that doesn't sound Sure. So quit that and then started trampling for fun, like, solely because they needed something to do I always think I carried that kind of like chip on my shoulder from artistic gymnastics of I'm not actually that good. I'm just kind of doing it. I'm not the best. I've never been the best. And so even when I was like, winning senior league nationals, and I was like, Oh, well, I'm just not, I'm not the best. Like, I am not the best. Maybe I won this competition, but I am not the best. So it took me like a really long time to even knowledge, the fact that I was really good at the sport.

Scott Benner 50:30
That's what keeps you going. That's why people who are good at things are good at them, though. Because they don't they don't sit back and rest. They don't they don't say, Oh, look how good I am. This is as good as I need to be at this is always something else. And something more and a fine tune here. Or you get to somewhere where it feels like a pinnacle. And you go, it's Pentacles not high enough. I'm going to tear this down. I'm going to tear it down and rebuild it again and start over and better the next time. I've watched my son tried to hit a baseball since he was three years old. I know what you're talking about. So it's exhausting. Yeah. And it's actually funny, because right now he's talking about going to grad school to keep playing. And I'm trying to find the words to say, Are you sure you want to do that? Before before? And I don't want to dissuade him if he really does want to do it, but and I but I it's a weird position to be in, right? Because I don't want to be the person that steps in and says, Hey, Charlotte, stop bouncing up and down on that thing. You got other things you could write, right? Because then you might stop and three years from now by like, this guy knew. Yeah, yeah, me stop doing this. And so I don't want to do that to my son. And at the same time, I don't want him to wake up five years from now and be in your position where you're like, Why the hell was I doing that for so long? You know, and especially when the when the payoff at the end? Is so unlikely to begin with. And but you were on it, like you were you were you really weren't right, you were headed to it? Is that right? Yeah. Do you think? So? Tell me that. So let's go back for a second you get diabetes? How far off are the Olympics at that moment?

Charlotte Drury 52:07
timewise. They're three months away three months

Scott Benner 52:09
away? Have you qualified? Are you trying to qualify?

Charlotte Drury 52:13
We still had all of the qualifiers to go through. So we had country qualification. So we still needed to compete at a World Cup to get the US spot. There were still that uncertainty. And then I still had three Olympic trials to compete at.

Scott Benner 52:27
Do you have any confidence that it would have gone your way?

Charlotte Drury 52:31
Had I not had diabetes? Yeah. Yes.

Scott Benner 52:34
Yeah, absolutely. Thank you, it would have worked out.

Charlotte Drury 52:37
Totally. And I mean, I do have like, you know, the evidence to support that as well. Because in 2020, before pandemic, and that season started in end of January, I think it was in February competed a World Cup. And I competed at a at the first Olympic trial of 2020. And knock those both out of the water, like I was in fighting for him. And I felt really good. And I for as tumultuous as my entire elite career has been, that was the first time where I was kind of having that thought, again, in a very long time of, I think this might work out, I think I can do this, it, it's right there. And I really didn't believe that I was going to get to that point again. Because also, my God, there's so much I mean, this Olympic cycle was really hard. The last Olympic cycle was worse. It was It destroyed me as a human being, I mean, just wrecked me, I was training for the 2016 Olympics. And I ended up breaking my foot the day before the last Olympic trial. So I had made it all the way up until that point training from three years old, to I was 20. And I survived a lifetime of training, just to literally break my foot the day before I was going to reach my goal. And I also kind of came in with a younger mentality, you know, I was 20 years old. And all I knew was this. So losing that, you know, my life is over. Not only is that I just lose the Olympics, I definitely lost my entire identity. So coming into this Olympics and getting diabetes, and seeing that decline and thinking that my grasp on the Olympics is going to be loosening and slowing down and I guess I'm losing it again. I wasn't as distraught by it, because I came in with a lot of a different mentality than I did in 2016. Because I saw how bad that destroyed me not making it and I wasn't really gonna let myself get back to that point.

Scott Benner 54:44
Have you made Have you met Kate Hall yet? No. Do you know who she is? No. Okay. So Kate is a long jumper. Who has type one? Who if I'm not mistake and blew up something in her leg right before the Olympics last time.

Charlotte Drury 55:05
The club no one wants to be in. Yeah.

Scott Benner 55:07
Kate Hall 2043 on Instagram. Okay, you guys might look her up, you might have a lot in common.

Unknown Speaker 55:15
That'd be the most depressing dinner party.

Scott Benner 55:18
Hey, Kate. Remember when the sadness washed over you? I do Charlotte. I remember the sadness. Should we get wine? Probably. How do you Bolus for wine? I don't know. If I want to jump off a bridge? Sure. So

Charlotte Drury 55:35
it'd be a soft place to land? Probably.

Scott Benner 55:40
Maybe, right. I mean, you you're, you probably there's probably a trampoline. Do you still? Do you work out at this point? Like just for personal fitness? Or how do you? How do you go backwards that far.

Charlotte Drury 55:55
It's only recently that I've started to even incorporate like physical activity into my life again. I definitely after I mean after 2016 as well. And after this past games, do that, like full pendulum rebound of working out all day long to absolutely doing nothing. And refusing to step in a gym and I don't think I'll ever stepped foot in a gym. Gym, not a gymnastics gym. I would love to go back and play around on a trampoline because I do love trampoline. I love bouncing. But will I go lift weights again? Probably not. But I do like to like, go out for walks. Maybe I'll jog for a little bit of it. Maybe I'll rent a little bit. Love bike riding. I love the like, lifestyle. Fitness, like the ways that I can incorporate activity and movement into just my life. Instead of having to carve out hours of my day to work out.

Scott Benner 56:54
If you haven't felt like this. Don't let me lead you there. But do you ever feel like a pawn in someone else's game? Like your college? Right? And I'm assuming they probably paid for a lot of it because you were you know, an athlete for them? Do you ever stop and look back and think nobody cares about my education? I'm just here because I can do trampoline. And because they can take pictures of me and put it on their social media and bring other kids in and go look bouncy girl, she's gonna go to the Olympics. Don't you want to get an English degree from us? Like like that? Does that? Does that? Did that happen? Did you think about that?

Charlotte Drury 57:28
I, I felt like that in a slightly different way. Because I did go to college. But it had nothing to do with trampoline, there was no trampoline program in college. So I was going to school and doing trampoline for the national team completely as two separate things. So, you know, college was something that I chose to do outside of sport. But I did I do feel like a pawn or I really felt like a soldier for gymnastics, where I was doing the hardest job in the organization. But was told that I was replaceable and told that I wasn't important and that it's not about me. It's about what I can do. And and yeah, it feels I do remember having that like specific lightbulb moment. I could tell you exactly where I was standing when I was like, hang on. This is really backwards. This is really wrong. Like did you ever watch the good place? Yeah,

Scott Benner 58:25
I love that show.

Charlotte Drury 58:25
You know, when that moment where she's like, Oh my god, this is the bad place? Yeah, like I've had that moment of like, oh my god, this isn't right. This is not how human beings should be treated. Athletes should be treated. This is not how I want to be valued. This is not how I want my life to be built. I don't like feeling like this. I don't like feeling like I'm replaceable and not poor. And yeah, only as good as what my score is tell me I am.

Scott Benner 58:54
It's like somebody takes the the culmination of your life's work and a major part of your identity. And they've built another thing that's based on you doing that. And you realize that in this moment, while you're competing, you have all of these desires and focuses and the person maybe even coaching you doesn't really care about you. They care about coaching, something that wins with the person that pays them is happy and they keep their job and it's almost it becomes not about the sport anymore. It becomes about everybody sustaining each other's entity. And I've just I've had those feelings. I've looked over at some of my son's coaches, and I thought he does not even know my kid. He just knows he catches that ball. I keep this job. That's that's how it feels sometimes.

Charlotte Drury 59:45
Yeah, and I think at a certain level, it's totally like that. intrinsics of course, but the reason I was able to survive 2021 was because my coach cared about me as a person. 40 cared about me as an athlete. That's excellent. He absolutely was my number one supporter of me as Charlotte as the person. That second I told him that I got this diagnosis. He didn't ask me about coming to the gym. He didn't ask me when I was coming back what my plan was what I wanted to do. He said, Take all the time you need, I'm here to meet me. Like, that's good. He's my number one.

Scott Benner 1:00:25
And also, I'm going to be honest with you, I had an ulterior motive for asking the question, I wasn't sure where you're gonna come back, because I've had this other thought that I've wondered about, and you seem just honest enough to answer this question. So let's see it feel like when suddenly a bunch of diabetes media outlets approach you, because you're one person that got diabetes today, but you look like you're going to the Olympics. And now suddenly, you're in the middle of, um, you described it earlier, right? You're completely confused. You don't know what's going on. Your health is all over the place. You're worried about your life, everything seems like it's gone. And then someone's like, Hey, I just got the funniest text. I'm gonna tell you about a second. I did some. And they're like, Hey, we know who you are. You're wearing something that says USA on the front of it, and you got diabetes, we want to interview you. Now. You're just upon again, right? But now for a different situation. But you You did it. So like, I'm not taking it, I would have done it too. I'm just asking, like, are you aware while it's happening? Or no.

Charlotte Drury 1:01:28
I think looking back, I have a lot more clarity. Now that the dust has settled on this last year. Because again, everything happened so fast. And there is one thing that not bothers me, but something that that I am really aware of. And it's I don't know how to really put this in words, it's like, I guess I feel like an imposter. I feel like I'm not really the person. That should be, you know, the diabetes poster child for diabetics, sport. Like, I did have diabetes for the year, before leading into the games. And I was diagnosed three months before the games. But I didn't know what I was doing. Like, I was just trying to survive. I was relying on all of the training that I had my whole life. Just to get through these three months, and doing these interviews now and having this attention and being in people being so excited, and being so inspired by it. And I was done propelled forward by that support. But I also like, God, the people that are diagnosed at two years old, the people that are diagnosed at 6789 10. Like, you guys are truly something else. You guys are truly like, I don't think I could have done that. Like

Scott Benner 1:02:49
somebody in those people. Right? Yeah. So

Charlotte Drury 1:02:52
So earlier, I'm a platform because they're the real superstars of this. Yeah.

Scott Benner 1:02:56
So earlier, I joked, I was half joking and half not joking about not reaching out to you at first, because people told me that I don't like to be told what to do, which is my own problem, right. But the other part of it that I didn't mention was, I don't like it when that happens for you. I don't know you, I have no reason to feel protective of you. But when people were like, ask this girl, I was like, Can she just leave this girl alone? Like, she just got diabetes, like her whole life looks like it's falling apart, and you're making her like, stand up and smile and go, I have type one, and I'm okay. And I'm like, I mean, I know it's inspirational for people. But you could be just as inspirational a year later. It doesn't need to be right now. So there's something about that click Beatty nature of content. And I don't buy into it. Like if you go back and look at the I mean, this podcast might have almost 700 episodes at this point. Wow. And the way you finish things I'd like for you to start at the beginning because I feel like I could get 700 Good downloads out of you, but but she's like, I'm not giving up now. He was terrible in season three. No, I wasn't. But, but I like just talking to regular people. They don't hide things. They're not practiced. They don't think oh, I can't say that. or I shouldn't say this. They just tell their story. And and I think just what you think put them out front, I mean, some of the biggest names in this space. Some of these people I really like. And I know a number of them. I don't want them on the podcast. They're just gonna say the same thing. They say all the time when somebody asks them a question. Again, it's not their fault. They're their dogs almost like

Charlotte Drury 1:04:33
they're just like, they're so scared of saying something that will alienate anybody. And I get it. I have been there. I mean, I've been Yeah, like, you know, the Little Miss Perfect gymnast, like doing interviews and saying great things about everybody all the time. Like it's only like recently that I really wanted to be a lot more honest because that's what connects with people and selfishly That's how people connect with me. And I need that connection.

Scott Benner 1:05:03
Everyone needs a trial it it's the it's the obvious elephant in the room that everyone ignores. They would rather say, Hey, today we're going to interview this person whose name you might have heard who also has diabetes, instead of saying, I don't know, I could pull up a list of 1000 names, right? Instead of saying, Look, this is an and had some kids, one of them got sick. Here's what happened. You know what I mean? And that's because we're all in. And we're all Charlotte. We're not all Olympians. And I listen, I've come out and say it. I've had people on the show before who were famous. And I tried to ask them about their diabetes. They don't know the first thing about, like, you know, and you're just and then people listen to the show. And they're like, Hey, I've been waiting for so long for this person. And they came on, and they were not valuable. And I'm like, yeah. Welcome to the life of someone who has a trainer, you know what I mean? Or who's somebody who's a meal ticket for somebody and no one's gonna let their blood sugar get out of control? Because they know how to catch a ball or do a thing. Make money for other people? Yeah,

Charlotte Drury 1:06:08
it's just a different life. And that might be really relatable for a very small demographic of people who are also in that in that circle. You know, the majority, it's probably

Scott Benner 1:06:18
not, you know, I once had on Mark Andrews Mom, he's the tight end for the the Baltimore Ravens, it'd be so much for telling me that it would be. It would be cool if he was on, but it's way cooler to talk to his mom. Like she raised them with diabetes, you know, like, it's just I'm not saying he wouldn't. I mean, maybe I don't know the guy probably come on here be terrific. And shut me right up. But but you know, like, it's, I just want to talk smack about it. He's like, I heard you thought I wasn't gonna be interesting. Let's learn, I'm gonna be interesting. So by the way, if Mark Andrews hears this, of course, you can come on. That's not the point. The point is that is that real people's stories, not that Mark Andrews isn't a real person or that you're not a real person. It's just that you're not that real people aren't practiced. And they're not worried about saying something. And as you and I were talking, I started feeling like this person, you, you're in the middle of a metamorphosis right now, like you are really shifting, you know what I mean? And feels like you want to be whoever you think you're supposed to be. And not the person you spent a lot of time being. Am I right about that?

Charlotte Drury 1:07:27
I think if you'd asked me six months ago, I'd be like, yeah, absolutely. That's exactly what is happening. I'd also probably be crying. If you actually recognize,

Scott Benner 1:07:35
if you want to cry, Charlotte, that'd be terrific. It really helps the podcast.

Charlotte Drury 1:07:39
ratings go sky.

Scott Benner 1:07:41
Love it when you're crying. No, I'm just kidding.

Charlotte Drury 1:07:44
But no, I do agree. I think I think I have gone through a lot in the last year. I feel like I've got a lot gone through a lot in the last eight years, I am only recently finding peace and what I've been through. And I really feel like the common theme that has now woven through the last couple of months is peace is that I found that I can be where my feet are, and that I can be happy with that. And that I don't have to pretend that I'm doing okay. And I don't have to pretend that everything's great and easy and wonderful, because that's the story that everybody wants to hear. Yeah, like I get to be a little bit more honest. And this is this community is very receiving I don't really feel like I have to perform on social media whatsoever I do. Fully just like to be me on it. It's not a friend or anything like that. But my therapist also said something. She was like you're we're are kind of caught between paradoxes right now, like your whole life is a little bit of a paradox because you are simultaneously so grateful to be out of sport. But I also really want to be back in it. Like there's a part of me that craves to be there again. And I'm, how is that possible? And I'm also simultaneously the happiest that I've ever been, but struggling with this really big thing. And so it's really confusing. I'm confused all the time.

Scott Benner 1:09:09
I'm always worried about performers. And if you're an art if you're a sports person, or an artist or something, you're a performer, like I have to some degree with this, like, what happens when your thing goes away? Where do you get your jolt? Where do you get your Jolt from? The the name that I always fall on recently is a former New York met and Philadelphia Philly Lenny Dykstra who slife just complete like prison drugs like tech something like I mean, a lot, a lot of you like, and I always looked at him and I felt bad, because I was like, That guy is just looking for that jolt that he felt when he hit that baseball or when he ran a ball down in a corner and 60,000 people scream like where do you get that from every day? You know what I mean? Like, yeah, so you've got this unnatural level of feedback, and then suddenly it's gone and listen I mean, I talked to a lot of people, I don't know one of them, really. But I can tell you that a lot of people are going to hear the conversation you and I are having. And if you suddenly told me, I didn't have an outlet for my thoughts anymore, I don't know that I wouldn't feel like you feel right now. You know, like, because this is a thing I do that I enjoy. And if you just took it from me right away, it would be hard to transfer to I think the transition? I really do. Absolutely, yeah. So I mean,

Charlotte Drury 1:10:29
as much as it is, as we all want to be human beings, no matter what, we are going to be a little bit of human doings. Like, who what we do, greatly influences who we are, that is inescapable, there's no way to get around that. But I have recently found a balance, and I don't want to be like preaching this. But the balance of finding things that you can do that are consistent, that won't be taken away from me. So the things that truly make me happy, it's really traveling, it's been in nature, it's connecting with people, those are things that I'm always going to be able to do. And whether or not it's, you know, trampoline and the success and the daily wins, or the daily losses that I get from that, that drives me forward. Like that. That always translatable to something else. But kind of, I guess I've stacked my identity with so many things now. But if you take any one thing out, towers not gonna fall.

Scott Benner 1:11:28
That's excellent. I am, I'm older than you by a lot. And recently, my wife and I are just trying to make sure that you know, our retirement looks like it's coming together. And the person who's helping us with that said, Well, what do you want to do when you retire? And I joked my way through it, and then later told my wife and told him, he's a friend. I said, that's the worst thing anybody's asked me in two years. I said, because I just see myself as a tool. I see myself in a couple of ways. I see myself as a tool that makes money. So the people I love are okay. And I see myself as a tool who makes diabetes content, so people with diabetes can be happier and healthier. If you take those things from me and told me I'm retired, I honestly don't know what would make me happy. And yeah, and I'm really lucky because the feeling of calm, that you're doing something valuable. I get out of this podcast, like the idea that I pay a bill, help people and enjoy what I'm doing, I think is magical. Like, I don't know how I got that lucky. And I also think while you're talking, how crazy is it that most people just want a little bit of that jolt and can't find it day to day? And then the people who get it get an unnatural amount of it. Right? Yeah, you've got a middle ground. Yeah, like why couldn't like why can't Lenny Dykstra or you share your pie with 100 other people so that people aren't driving home 1000 miles an hour screaming at each other out windows and yelling at people online, just trying to find some excitement, you know what I mean, like somewhere, and meanwhile, you've got more than anybody needs in the whole world. It's just

Charlotte Drury 1:13:08
I think it's funny that also that, that's kind of the perception that people have of me. I might just be because trampling is a very obscure sport that doesn't have like this massive fan base. It's not like it's basketball, or even artistic gymnastics. Like, I really don't feel like I've ever had this much attention, or, like, you know, a stadium of people clapping for me,

Scott Benner 1:13:35
like, coming from your parents. Were they proud of you? Did you not want to let them down any of that stuff?

Charlotte Drury 1:13:45
To be honest, I really think that my head was down. And I was working so hard that I wasn't really looking. I mean, obviously, their approval and their support meant so much to me, and I'll probably unpack that in the next couple of years. Of like, how much that meant to me. But I think it was important that I was proving to myself that I was good enough. And I think that's truly what my driver was, because if we're really gonna get into it, I myself, my biggest thing is that I've never been good enough. And that's really what's driven me forward through a lot of things is, oh, I will be good enough when I reach this goal, or I will be good enough when I do this, or worthy, like whatever word you want to put in there that connects with you. It's it's, it's always that sense of incompleteness. And I just don't know that I ever received that from sport, even making an Olympic team. I don't feel any more complete than I did before making the team and I don't feel any less complete, but I feel like exactly the same person. And the things that truly fill me up. Have nothing to do with sport anymore.

Scott Benner 1:14:51
Are you having any trouble with those feelings? And then are you applying them to diabetes like are you feeling competitive about or health in an unhealthy way or anything like that.

Charlotte Drury 1:15:03
I definitely was, especially while I was still training, it was, I'm going to be the perfect diabetic, I'm going to be the best diabetic you've ever seen. Because I have three months to figure this out. And I need to was my excuse. But the truth was, I was just terrified. And I was I was just scared, I just wanted to be perfect with that management. And that's also something that's kind of unraveled in the last couple of months, and kind of led to that meltdown a couple of weeks ago, of, I can't be perfect, I'm too tired. I'm, I'm too tired dealing with this every single moment of every single day. And so I took my my glucose monitor off, and I just kind of said, Screw it, like, let's just relax for a week, I'm obviously going to still be safe and take care of myself to the best of my intuitive ability. But I can't I can't do this constant perfectionist mentality of everything needs to be perfect.

Scott Benner 1:15:55
Yeah, you need to find a way to put your head where Rhiness like, I want it to be good. And when it's not, I just move on. I don't I don't, I used to torture myself when my daughter's blood sugar got out of hand. Like I really would torture myself about it. And I just mean, like, sit there and think like, oh, you messed this up, or blah, blah. And then one day I was like, I can't like how is this sustainable? You know, like, I have to stop doing this. I thought a little bit about when my son was little. Before he went to play baseball, I would hug him because I'd been a stay at home dad for a really long time. So I'd hug him, I tell him, I love you. None of this matters. Go have fun. And then send them out. And as he got older, that changed into I love you. You're only playing baseball to get better at baseball, today's outcome is not important. Go have fun. And there was one time he was recruiting for college. And we were in a car and we were about to get out of it. I looked at him. I said, Hey, man, it actually really matters today. Like go out there. Like it really matters because I think this is this is where decisions get made today, you know? And he was like, Okay, I said, still have fun. But go for it, you know, just really go for it. And he did. And I do think today he is he is still who he is. And it applies to sport the way it does, it also applies to other things in his life. But he's not completely connected to it. And I want to hope that that is in some way from me saying this doesn't matter. grand scheme of things. You're not You're not a baseball player your call like go, you know, and? And I don't know, like, because you're gonna have to disconnect from all of that. I mean, you're wired a certain way, obviously, it is not going to be good. If you apply that to diabetes management over a lifetime, you're gonna be bad for you, right? I mean, that's the kind of thinking that leads to, I mean, eating disorders and, and all kinds of stuff, which I'm not saying you're here, I'm just saying that's not a path you want to go down, obviously.

Charlotte Drury 1:18:02
Oh, for sure. And just to kind of like, touch again on what you were saying to call of like, when that moment came of after, you know, his lifetime of training. And you said this moment does matter. And he didn't choke in that moment. And he was able to perform, and he was able to do it. Because he had a lifetime of preparation that said, I am Cole I am not baseball. And he just was able to go and have fun in the sport for a lifetime up to it. That's why he could perform in that moment. You know, when the pressure was on, he could draw on all of that experience. But if you put that pressure on a kid who's nine years old, and you said you need to win this game, or you need to win this meet, it's gonna freak out.

Scott Benner 1:18:47
I don't understand why people believe that that's the way to talk to anybody, let alone children. But like now do it now we're all gonna die. Well, you know, right there. I think we're in trouble. Because right, yeah, you're panicking the hell out of me. I think

Charlotte Drury 1:18:59
I think I remember getting told before an Olympic qualifier. And I think it was like, in good heart. But it was what you because it was just me competing at this meeting. If I didn't do well, at this beat, there was no spot for the United States and the Olympic Games. And it was like you need to perform so that everybody else for the rest of their life can say that they competed in US Olympic trials.

Scott Benner 1:19:30
Okay, I'm in charge everybody. Great. So just everybody's happiness, though. Is that all I'm in charge of right now. Yeah,

Charlotte Drury 1:19:39
exactly. I'm in charge of everybody's rest of life.

Scott Benner 1:19:42
Great. How old were you then by the way?

Charlotte Drury 1:19:45
I was 19. Yeah, it's

Scott Benner 1:19:46
perfect timing. That's a great time to be put in charge of everybody's life. You're really your finger on the pulse at that point. No, I fit but see, I think of everything that way. I mentioned recently on the podcast. If you liked the way that I talked about diabetes and it helps you it's really just the way I think about life translated to diabetes, you know, and, and I agree so much with what you just said, like when people the way it the way I think of it now is when people always say to me is my daughter's growing up? Will sure you're good at it, but how are you going to explain it to her. And I would always say, I'm not going to just explain it to her, she's going to live it. And through me, I'm going to shoulder most of it, she's going to see it happen. And she'll take from it what she needs. And one day, she's just going to know. And to your point, one day, my son's just gonna be able to walk out in front of I mean, I'm telling you 300 college coaches on a field the size of like, it was, like, massive, and everyone's holding a clipboard and looking at you, and it's baseball. So it's one at a time, your turn now, go catch the ball, you better do it better than the other kid, don't mess up Don't trip, when you get the ball in your hand, throw it to the right place. If you look bad for half a second, you actually see people look down and write and you can see lines, or you can see writing lines or writing on clipboards. And you can't be thinking about it in that moment. And I think diabetes is the same way. I think at the moment, you're thinking about it too much. And I swear to you, this is not a sales pitch. I don't listen, you and I are never gonna see each other after this. I agree. I've had a lovely time talking to you. But you know, but if shit goes sideways for you, Charlotte, what am I going to do? You don't I mean, but I could lay a list of episodes on you that I think would make your management easier. Cool. I think it would put you where you want it to be. And I think it would in a month or so's time. You would start doing things without thinking about them. And I think that's something a lot of people drive with. But you especially because I imagine that you just land on your feet on that trampling you don't. I guess when you think about it, you're in trouble. Right? Like you need to feel it. Exactly. Yeah. I think you need to feel diabetes. That's how I that's how I do it. And a lot of people listen to the show do it. Same way. I think it would work really well for you. I think I could maybe get two pages in that autobiography one day one. Yeah, well, I get one real estate. I mean, listen, I'm gonna save your life. And then the book. I deserve a little bit of a spot. You know what I mean? Like Jesus, you get really grumpy all the sudden, it's just an extra page, Charlotte, just tell them just tell the publisher, Look, I told this guy would do this. negotiable. I'm not going to charge your money for it. I just would like to see it happen. I wrote a book Charlotte and let me tell you something, it takes a lot of time. I wish they'd do it. It's just it takes so much time. And then you have to like pump it and pump it to get people to buy it. And then they buy it. And then it's it's gone. It's like an Instagram post that gets 1000s of likes. And then a week later, you look back and it has only gotten one more in six weeks. Like why just the world still not know about my amazing Instagram post. The book did this thing. It was like on fire and then it was gone. What did

Charlotte Drury 1:23:00
you here's, here's my question for you. Did you write the book to write the book? Or did you write the book to publish the book?

Scott Benner 1:23:07
Oh, that's interesting. I wrote the book. So I was offered a blurb in someone else's book. I've never told the story. Exactly, honestly, because I think it hurts somebody's feelings.

Charlotte Drury 1:23:18
That's okay. They probably will hear it. You think

Scott Benner 1:23:21
they're lovely people. And I don't mean it this way. So. So I was asked to write a blurb. I wrote a blurb. I think there's about 1000 words. Their publisher called me one day and said, Hey, do you have any ideas for books? And I said, What? And she goes, your 1000 words are probably the best 1000 words in that book. Do you want to write a book? And I was like, Yeah, because I want to write a book because I barely graduated from high school. And I was like, seriously, me? Sure. Why not? And so we're talking and she wanted it to be about diabetes. And I said, No, no, I'm not going to do that. I said, I'm not ready to talk to people about how to manage their diabetes. And for it to be somewhere forever static. I said that I am a stay at home dad, I think I have great stories about that. I could write about that. And she's like, alright, you have a week to send me an outline. So I wrote the outline in like 10 minutes. And then I sat on it for six days to make it look like I worked really hard on it. Of course, thank you. And I sent it to them, and they're like done, we'll send you this much money now. And in six months, you send us the manuscript, and we'll send you the other half. And I was like, Cool. I remember exactly my house where I called my wife while she was at work. I was like, I'm gonna write a book, it's gonna get published. And she's like, can you write a book? I swear to God, this is my wife. So again, if she's been nice to me, like four times, can you write a book? She says, and I go, I don't know. But I'm gonna find out. Yeah, exactly. That's the worst thing that happens is like giving back the advance. And I don't read a book. I'm like, I'm going to try you know. So, I will tell you that it's cool to be published. I don't look down on people who are self published, but when I see people self publish things there There's a small part of me that goes, somebody paid me to do it, but okay, and they're absolutely. So I have a little that I am very, I'm going to be honest with you. I'm incredibly competitive. Like, I love this podcast. Oh my god, I love that people love this podcast. But I love also that it's like the most popular one.

Charlotte Drury 1:25:20
Of course, nobody wants to be average at what they do.

Scott Benner 1:25:23
It does make me feel good. A little bit like I don't run around like, like, I'm not like, Listen, you know, listen,

Charlotte Drury 1:25:32
egos, Freud can go, you guys are a good thing. egos are good. To an extent. They, if you can get your ego filled in a healthy way from a certain outlet, it allows you to not have an ego in other places. It allows you to be a humble father, when you succeed at work. It allows you to be a failure of a writer or failure of a photographer, if you can succeed at something else, because you have the cushion to try because you said well, I know I can succeed at something.

Scott Benner 1:26:09
It also helps me stay motivated. Like I record this week, as an example, I recorded this podcast five times this week. So I've had probably five, six, I've probably had seven and a half hours of conversations this week. And a lot of talking Yeah. And in that time, I'm also editing the show and putting it off and supporting it online. It's a full like it's about a 75 an hour. Yeah, probably 75 hours a week, I put out a podcast. And if it was just mundane for me. I know it would it would wane but there's part of me that likes waking up in the morning and going like forget other like diabetes podcast forget health podcast. This This show is in the 96th percentile. All podcasts on Apple. Well, that I that's cool. Yeah. If I ever get tired, I think about that. I sit right down. And I'm like, so you're depressed and you have diabetes? Let's talk. You know, like, interesting. Yeah, I can I can, I can do it. Because I also listen to all that aside. I know how much it helps people. And it's amazing. You know what I mean? Like this the best the best thing I've ever done in my life, like aside on my children in my family, like making this for people's really cool. Yeah, the scopes important? Because I'm sure other people make great content that I'm unaware of. But if no one's listening to it.

Charlotte Drury 1:27:27
Listen. Yeah, exactly. You can't be a fan of something that you've never heard of.

Scott Benner 1:27:32
Right. So someone's got to see it bouncing up and down on that trampoline. Or what's the point? You know, exactly, then it's just anyway, all right.

Charlotte Drury 1:27:41
Yeah. Well, I have a question. I got one more question. Do you know your Enneagram number? Because I feel like I know your Enneagram number.

Scott Benner 1:27:47
My what number? Your Enneagram Oh, God. Two years old Charlotte, have you not just been impressed that I've kept up with this conversation and you're 26 You want me to start knowing things that younger people understand

Charlotte Drury 1:28:02
that? Okay, here's Okay, here's your homework.

Scott Benner 1:28:04
I got the internet. Go take

Charlotte Drury 1:28:05
the Enneagram test. It's not a quick thing. You can't do it right now.

Scott Benner 1:28:09
I gotta find it or I'm never gonna remember it. i My brain is not like, it's like,

Charlotte Drury 1:28:15
okay, okay. Once you do it, we'll circle back for part two. And we're going to we're going to dive into your Enneagram

Scott Benner 1:28:22
the Enneagram Institute.

Charlotte Drury 1:28:25
You can do it. The reading you take the test in a lot of different places. It's

Scott Benner 1:28:29
called a reading test. Rizzo Hudson. Enneagram. Trudy Trudy Yeah, Jesus very specific. What are we married, right? You're doing it wrong. Go to Trudy an idiot. Understand who you really are. Oh, God, this seems very scary.

Charlotte Drury 1:28:50
You're gonna love it. It's gonna be great.

Scott Benner 1:28:51
Right? You say? Yep. I have a hunch. Good.

Charlotte Drury 1:28:56
I have a hunch I should I spill it or should I'm going to hold I don't want to influence your results

Scott Benner 1:29:02
can influence my results. There's no way I'll remember I recorded like five of these a week. I just I'm getting

Charlotte Drury 1:29:09
I'm getting strong too with a one wing

Scott Benner 1:29:12
here to with a one way I won't remember that. So I'll just write it down. Okay, write it down. We'll circle back. I had a person on Tuesday who recorded a beautiful after dark episode when they about her life struggles young mom. She has type one her son cancer at a young age terrible story is one of my favorite episodes. And I asked her to come back on and she comes on we're talking for six minutes before I go oh, I know who you are. I am the worst. I don't. I know people. It's very it's very popular to say you don't prep for your content. Right because it makes you seem like all like I honestly I'm relatable. I swear to God when you started talking. I was like gymnastics. I don't know. it'll it'll come out, you know, and I really, I don't I don't know I don't prep for this at all.

Charlotte Drury 1:30:10
That's why today was so fun. It was so refreshing.

Scott Benner 1:30:13
I'm glad best best interview you've done since you have diabetes. Yeah. Oh,

Charlotte Drury 1:30:18
all right. How about anybody else that's interviewed me though?

Scott Benner 1:30:22
No. Well, those people obviously did the best for you. They obviously did the garbage. That's no reason to be upset. That's not fun at all. Just very good at this. It's not their fault. You know what I mean? So no drugs. By the way, no one has been here. What's the pressure like for that? In doing drugs? Yeah, like for enhancing drugs in the Olympics? I never tested but I mean, people gotta get away with it. Right.

Charlotte Drury 1:30:51
I feel like in other sports, it's like, the pressures way bigger, like cycling and weightlifting, when it's like, it would make a difference. But in trampoline, it really wouldn't make a difference. Like I guess maybe you could be a little bit stronger. But

Scott Benner 1:31:04
rehab faster. Still not an issue, though.

Charlotte Drury 1:31:07
I mean, I mean, I guess it's just never crossed my mind. But I don't know what can make you flip better. Or like be better. In the air.

Scott Benner 1:31:17
You know, is the flipping all, like, muscle memory practice? And then letting go? Yeah, yeah.

Charlotte Drury 1:31:24
My best routines that I've competed, I'll finish. And I'll be like, I don't remember any of that. Was it good? I wasn't there for it.

Scott Benner 1:31:34
Yeah, my you know, it's so funny. You say that, because I'll go downstairs and my wife will be like, how was it? I'll be like, great. Good. What are you talking about? Like, I don't know. What's going on? I'm like, she's like, how do you know what's going on? Like, I don't know. I feel like it went well. And there are times I walked downstairs. I'm like, I don't know if I did very well today, or I was tired or something. Yeah. And then I'll listen back or I'll get a note. People are like, I love that episode. I'm like, oh, so it doesn't always have to be the way I want it to be it you know, other people can find it differently. Charlotte, you and I get along very well. This was delightful. This it? Oh, I say delightful all the time. That you said it and I didn't the people listening now we're gonna be like, feel stolen? No, it's Mecca. People are people are like, Oh, my God, Scott made her feel delightful without telling her that I'm telling you right now there are people just fanning themselves everywhere that like it happened. Do you want to hear about that? Do you want me to say something really tell you about the text that I said, Oh my God, I'll tell you about this. I do. I do. I do. So someone's gonna judge my daughter over this, but just let it go. My daughter and I are in the car the other day. And she's you know, she's getting ready to graduate from high school. And she's like, you know, we had such a calm year at school. She's like, there haven't been any big fights. There's no teen pregnancies. Like it's just been such a boring year. I got a text while you and I were talking. It says My wish came true. We got a teen pregnancy in school.

Charlotte Drury 1:33:01
Oh, this is like the equivalent of like reality TV in our society. Yeah,

Scott Benner 1:33:04
she like has my personality, but she's in like a smaller female person who's younger.

Charlotte Drury 1:33:09
So that's funny, though. That's funny. She should have a podcast.

Scott Benner 1:33:13
She trusts me. She was on one episode of this. And I get notes pretty much daily. Can Arden come back on the podcast? She's like, she's like, she's like, I don't care about all this, like, people I had sent questions for. And she's like, I don't I don't want to know I don't like she's like, this is your thing. I don't. Because I told her one day I was listening. I was like, the podcast is really popular. It's like you sure you don't want to come on at once in a while, maybe take it over when I get older. And she's like, No, like, Alright, fine. I felt like girl. I felt like I was a plumber. And I said to my son like, I can teach you how to better take over the family business. Yeah. And he was like, I want to go to college. I'm like, but we got trucks in the shop and everything. Who am I gonna give it to? You know? Anyway. You were really terrific. And I would say delightful. But you beat me to it. I stole it. Hey, do you know 1234567 It looks like you and I said seven. Well now eight times. But that's okay. I have a clean shows I just edited out they'll be like this little blip. I don't want to lose the show. Believe it or not. I can't run the show in India if I curse on it, and a couple of other places. Yeah, and it's popular.

Charlotte Drury 1:34:27
How much of an international audience do you get information on your demographics? Do they give you that?

Scott Benner 1:34:31
Do you want to do this right now? Do you think people care like we can stop recording but I can tell you

Charlotte Drury 1:34:36
they could they could duck out whenever they want. Yeah, I'll

Scott Benner 1:34:38
tell you what nerd out first again. Yeah, I'm gonna I'm gonna do is thank the sponsors that the guys so I mean, I really do need the sponsors. Like you're not getting this podcast about the sponsor, unless you all want to start paying for the show. And I'm pretty sure no one wants that. So just just you know, get a Jif of hypo pen or whatever today's thing just Same Yeah, yeah. Do you

Charlotte Drury 1:35:01
can you tell when people do like to fast forward 15 seconds through the sponsored

Scott Benner 1:35:07
more people? Yes. I mean, some people do jump through the ads, but I try very hard to make the ad something you want to listen to. Ah, okay. And sometimes I do that by recording them very late at night. So that I'm a little like loopy.

Charlotte Drury 1:35:24
So that your like actual, like excellent content in the ads.

Scott Benner 1:35:29
The ads feel like content anyway. Like I can't get some of these people are gonna end up making a better podcast and like keep giving away all my secrets. Are here's the top like, Alright, here's the top countries, US first than Canada. The show is huge in Australia, United Kingdom, Ireland, Germany, Sweden, the United Arab Emirates, New Zealand and Saudi Arabia.

Charlotte Drury 1:35:52
Hey, what what percentage of your people are from Arab Emirates?

Scott Benner 1:35:57
It's it's I don't have it as a percentage. The smaller number there on the list. Yeah. And I'm only looking at Cool. Yeah, I'm only looking at the last month. But from there, Israel, South Africa, France, Switzerland, Norway, Japan, Hong Kong, India, the Netherlands, Spain, Kuwait, Puerto Rico. Denmark, Egypt, Ukraine, Bahamas, Mexico. Singapore, Thailand. Panama, Finland. Cayman Islands. I'm huge in the Cayman Islands. I'm not kidding. Qatar, Taiwan, Slovakia, Chile, China, Italy, Romania, Belgium. These are all places in the last 30 days. Virgin Islands. While there's a place I don't know. Hold on. We'll come back to that. Poland. Austria. No. Say you have to say it out with your brain. Philippines. Portugal. Are you ready? Yeah. Libby, Libyan Libyan Arab. jamaa Haria.

Charlotte Drury 1:36:55
Okay, no, also have never heard of that. Now. I was an international studies major. I'm not sure that place exists. According to my knowledge. Oh, wait a minute.

Scott Benner 1:37:06
I'm googling. Yeah, that's a good place.

Charlotte Drury 1:37:09
It's earlier in the conversation. We can do that now.

Scott Benner 1:37:12
Oh, yeah. The internet's right here. It's in Libya. I guess history of

Charlotte Drury 1:37:18
lives like an independent territory inside of Libya,

Scott Benner 1:37:21
the Libyan Arab Juma the Libby Alright, hold on. Libyan Arab Gemma harissa is a country in Northern Africa that is slightly larger than the state of Alaska and shares borders with Tanzania, Algeria. Niger. It's a place and people

Charlotte Drury 1:37:43
haven't seen it the UN is it like I've never heard of this country.

Scott Benner 1:37:47
Right. Let's see United Nations. This is what you want to know about. Do they have a seat at the Yeah,

Charlotte Drury 1:37:52
I think I think that people are gonna agree with me. This is curious stuff.

Scott Benner 1:37:57
All right. Hold on. I got a un thing here from 2016. Libya political deal not open for renegotiation Libyan Arab Jim, I don't know the recent political chord paving the way for unity government. Libya is not open. It sounds like it's a split off thing around Libya. Best I can guess.

Charlotte Drury 1:38:19
You I just know that the rest of my day is going to be researching this.

Scott Benner 1:38:22
Well. I hope you do. Oh, here we go. Dominican Republic, Malaysia, Pakistan, Brazil, Czech Republic, Hungary, Russian Federation, Nepal, Malta, Nigeria. These are all places where people have listened with reasonable frequency in the list. That's really cool. Yeah, that's crazy, right? So everybody who has diabetes who speaks English at some point or another, finds out about the podcast. And it's because of the Pro Tip series, which I will tell you about as soon as we hang up here. Okay. Yeah, I knew that. That I can't believe you made me do that. Because it seems like I'm bragging. And I was

Charlotte Drury 1:38:58
I just listen, I allowed you to do that. I know you wanted to. Oh, my God.

Scott Benner 1:39:03
Are you kidding? If it was up to me, the whole podcast would just be about that. And then I'd be like, Oh, and here's bouncing it off though.

Charlotte Drury 1:39:09
You should end the podcast with I would just like to thank my listeners in and then name every single country.

Scott Benner 1:39:16
That wouldn't be too boring. Charlotte, let's say your name your your name really quick three times fast and see if we get lost. Ready?

Charlotte Drury 1:39:25
I have a lifetime of experience everything. My whole name do it. Charlie Gray, Charlotte Gray, Charlotte gray.

Scott Benner 1:39:30
It just falls apart. They're not even letters and sounds anymore.

Charlotte Drury 1:39:34
It's like saying word overnight or real name. That's all. That's it's in fact, it's it's quite a real name. And I like it.

Scott Benner 1:39:44
I do too. Is there anything we didn't talk about that we should have?

Charlotte Drury 1:39:49
I don't know. I can't remember what we talked about.

Scott Benner 1:39:51
Perfect way to end Hold on one second.

are a huge thanks to Omni pod for, you know being sponsors on the pod.com forward slash juice box find out if you're eligible for the free 30 day supply of the Omni pod dash or get more information about it or learn about the Omni pod five. You can do it all right there at my link, speaking to my links. What about dexcom.com? Forward slash juice box? Are you eligible for a free 10 day trial? The Dexcom G six. Yeah might be go check it out. dexcom.com forward slash juice box. US residents who have type one are the caregivers of type ones. Please go to T one D exchange.org. Forward slash juice box and fill out the survey. When you support the sponsors. You are supporting the show. I am the show. There's really there's just it's just me. So help. Click the links. Okay, thanks. Oh, you know who else I want to thank Miss Charlotte jury. Wasn't she delightful? Really, really, really good on the podcast today? I thought she was incredibly honest, really forthcoming, wonderfully relaxed, not guarded. I swear to you when this was over, she and I talked for another half an hour I met her partner. We I just really, really vibed with her thought she was terrific. I even joked with her. I said I'm gonna start up another podcast and just make you my co host. I don't know what that podcast would be about. But I think if I was doing it, whether I'd have a really good time. Anyway, I hope you enjoyed this episode too. I love to bring it to you. I will be back very soon with another episode of The Juicebox Podcast. Don't forget, subscribe and follow in your podcast players. Tell friends about the podcast, share links with them. Do your best to grow the podcast. You are my emissaries in the world. Go forth and emissary

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#681 Defining Diabetes: Types of Diabetes

Scott and Jenny Smith define diabetes terms

Scott and Jenny Smith define diabetes terms In this Defining Diabetes episode, Scott and Jenny explain the different types of diabetes..

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Alexa - Google Play/Android - iHeart Radio -  Radio Public or their favorite podcast app.

+ Click for EPISODE TRANSCRIPT

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 681 of the Juicebox Podcast.

Today, I'm back with Jenny Smith for another episode of defining diabetes. And today Jenny and I are going to define all of the different types of diabetes. And there's more than you might think there's type one and type two. Sure. But what about type one and a half? Is there a type three, a type eight, we're gonna find out. While you're listening today, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your healthcare plan, or becoming bold with insulin. If you're a US resident who has type one diabetes, or is the caregiver of someone with type one, the T one D exchange is looking for your thoughts. Those thoughts come in the form of answers to survey questions that you can find at T one D exchange.org. Forward slash juicebox. completely anonymous, HIPAA compliant, easy to do, helps people with type one, t one D exchange.org, forward slash juicebox take you less time that it takes for you to figure out that Wordle. And you'll help somebody that word doesn't help anybody.

By the way, I got the word of last night and three, I was pretty proud of myself. I digress to say this. This episode of The Juicebox Podcast is sponsored by us med. Get your diabetes supplies from us med. I'm going to in this episode of the podcast when I get to the US med add, I'm going to read something that a listener sent me for now know this white glove treatment, always 90 days worth of supplies, they have fast free shipping, you get it every time us med check them out at us med.com forward slash use box or an 888-721-1514 at that link. And that number. You get yourself a free benefits check and get started today with us, Matt. Hey, Johnny, how are you?

Jennifer Smith, CDE 2:22
I'm fine. How are you? Scott? Good,

Scott Benner 2:24
good. Good. I want to do a defining episode today about the types of diabetes. Oh, fancy. I was surprised by this. So I mean, first, let's just get the one out of the way that I think will be easiest forest, type one diabetes. What is it?

Jennifer Smith, CDE 2:43
Essentially, conditioning the body that means that your pancreas is no longer producing insulin from the beta cells, right? I mean, there's been destruction of those beta cells to the effect that you now have virtually no or have no insulin production left. So

Scott Benner 3:04
you might also hear it called juvenile diabetes, insulin dependent diabetes. I think it's important to say it's a chronic condition. There's no known cure for it. And it's autoimmune. Correct, right. So this happened, because, you know, go listen to another episode about there's a defining diabetes episode about antibodies, that one listen to that one, if you want to know more about it, but the bare bones idea is you didn't do anything to get diabetes, your body just got a little confused, took off after your beta cells instead of the flu or coxsackievirus or whatever else you had that your body should have been doing that day. And now you do not have functioning beta cells in your pancreas. Correct. Alright, so there's not going to be much to this, obviously. But we want to put them all in here together. So type one diabetes, that's what it is. Boom. Now, you would think obviously, we're gonna go to type two diabetes, because you all know how to count you think one and then two comes after but no, there's that would be too easy. There's a type 1.5 diabetes. That's Lada. Right.

Jennifer Smith, CDE 4:15
That's Lada. And in fact, I've I mean, I think more lately, it's definitely been referred to as lotta latent autoimmune diabetes of the adult, right. I have heard the term one and a half a lot less often, which I think is actually not a bad thing. Because if you consider the true nature of that type of diabetes, it tends to be a lot more similar and is often classified with type one, but happens truly in adults, and is for most people a slower progression to diagnosis. Okay. So still is an autoimmune disorder or you know, an autoimmune condition where the body has destroyed beta cells. In adult, it seems to be a slower progressive destruction. So again, a sort of a slower diagnostic. In fact, I've had a number of people that I've worked with who've actually been misdiagnosed, because it was so slowly progressing, that they were just initially diagnosed type two, and they really weren't.

Scott Benner 5:27
Yeah, I hear about that a lot. Actually. The type does lotta have characteristics of both type one and type two? Was it somebody being like, cute when they named it? Like, it's almost type two and almost type one, and it's in the middle? Nothing like that.

Jennifer Smith, CDE 5:41
That really, I mean, again, there are there are characteristics I think in people who have either type one or type two, that could cross and look similar to the other type of diabetes being the two main types, type one and type two, right? And then you could have some insulin resistance in type one, which typically isn't the reason that type or it isn't the reason that type one is there, right? But they could have some resistance, which is much more classified with type two. So somebody with LADA could certainly have some of both of those pieces, but Lada will be diagnosed because there will be antibodies present. Okay.

Scott Benner 6:21
So if I want to think about that in a really basic way, it's a very slow onset type one diabetes that only happens in adults.

Jennifer Smith, CDE 6:30
Right? A B would not be a child and be diagnosed with ladder

Scott Benner 6:33
because of the super slow onset. People can confuse it for type two diabetes.

Jennifer Smith, CDE 6:38
In a general Yes, in a very easy way to see it. Yes. Yeah.

Scott Benner 6:42
Because it's you're still getting work out of your pancreas. But it's not shutting off kind of abruptly, like you see with type one. Correct, right. So when you're saying a slow onset, it's not like a honeymoon. It's, it's much more protracted than that.

Jennifer Smith, CDE 6:59
It is, in fact, people with people diagnosed with Leida Lada often have once they actually get diagnosed and have the right tools to manage insulin being major one of them right, they often then may have a longer honeymoon after they're actually diagnosed. And in fact, people with LADA also often have more beta cell preservation. Longer term, they still obviously have to use insulin, but their insulin doses may look very small, comparative to others who have had type one for a while and their same age and same body type and same activity level and whatnot. So there are you know, defining differences between type one and Lada diagnosis.

Scott Benner 7:55
I find it interesting when you Google something to see what else people ask about. Yeah,

Jennifer Smith, CDE 8:01
I'd be curious what did you Google? Well, I

Scott Benner 8:03
just definition type 1.5 diabetes. Because you mean you know you're gonna know way more about this stuff than I am. So I wanted to I wanted to be ready a little bit. People listening are like Oh, thanks.

Jennifer Smith, CDE 8:16
You wanted to put on your your graduation cap.

Scott Benner 8:19
I didn't want to do it. I didn't want to do it. A lot of people do and on podcasts and just philosophize out loud about things they think they heard one time so but I do want you to have a little bit of that because I think that that is how people start with Oh, I heard this or I thought that but so other things people ask about Latos what is the difference between type one and a lotta? How can you tell if you have Lada? What do you consider Lada? Does lotta diabetes, shorten your life? Oh, that's sad. Let me get some insulin should be fine, right? Correct. Shouldn't be shortened anything. But anyway, like not to even Delve. Although what's the difference between Let me see how it talks about the difference?

Jennifer Smith, CDE 9:01
I mean, I'm curious and who defined it would be another good and well, I guess in terms of source

Scott Benner 9:05
Yeah. So you I mean, you did a great job. This one comes to it goes to beyond type one.org. As a form of type one diabetes a lot is the result of your immune system attacking the beta cells in your pancreas to produce insulin. The only difference is that the attack is slower, which means so you don't need these people. You got Johnny, it's all good.

Jennifer Smith, CDE 9:25
But I'm glad that I'm in agreeance with another source of good information like beyond type one, let's

Scott Benner 9:32
say I don't even know what we would have done right now if I would have read something that completely contradicted what you said. I would have been like, Jenny's fired and then you as I was going away, you'd be like you don't even pay me and then that would have been the anyway. Alright. So now I got into this weird space. I know you think now we're definitely going to do type two. Not quite yet. Hold on. Where I saw someone online and we'll talk about this maybe at the end of this. I just put up a post and I was like, guys, hey, Listen, what else belongs in the defining diabetes series. And this person says, I keep hearing about type three diabetes. So I was like, alright, so I googled, and I got type three diabetes is a proposed term to describe the interlinked association between type one type two, and Alzheimer's disease. Yes, the term is used to look into potential triggers of Alzheimer's disease in people with diabetes,

Jennifer Smith, CDE 10:28
linked to insulin resistance, and insulin resistance and an insulin. Kept to remember that insulin like growth factor is what they're looking at insulin resistance specifically in the brain. And what they're, they've also often linked to type two and Alzheimer's disease, which is sort of what triggered this type three name overall. So there's a lot of medical research about blood sugar, and brain health. It's, it's amazing if you look into it, not only not only Alzheimer's, but Parkinson's and many of those neurological conditions disorders, there, there are a lot of big links with blood sugar.

Scott Benner 11:21
So then I went down a rat, another rabbit hole, oh, my god, what is type three C diabetes. And I was like, Where will this end? And then I kept googling. There's a type four, and a five and a six, and a seven, and an eight. And I stopped at eight because I got freaked out.

Jennifer Smith, CDE 11:43
And I, I mean, those are very specific to other system issues in the body. They're not, they're not definitely like type one type two gestational, they're not Lada they're not in that same realm of categorization. I mean, even when we were defining type one, you know, type one in another, and I'm sure it has some type of letter categorization to it. But I've worked with people who have actually had pancreatic cancer, and pancreatic, you know, removal from their body, which means that there's not one autoimmune reason that they are deficient in insulin or beta cells. They just don't have the gland anymore that makes it

Scott Benner 12:30
right. Like, what did they just when you have a penk Ritek? When they take out your pancreas for reasons that are like another thing? Do you? Are you assigned a different type? Or are you just type one that

Jennifer Smith, CDE 12:44
I believe that if it's a pancreatic cancer that falls into the type three C categorization. And I know that I've worked with only two people who have actually had cystic fibrosis. And as a result also had what we just treated the same as what we would do with type one diabetes, right? From a standpoint of management, its insulin management, both of them were on pumps, you know, so, but that's not true. Type One, there's another body condition there. Yeah. Because

Scott Benner 13:26
the auto immune didn't cause it. You're right, you're gonna live like a type one after that. But you didn't technically ever have type one diabetes. And that I've interviewed a number of people who have had their pancreas removed for other reasons. And they are they do want that distinction. The people I've spoken to so far, you know, I've also heard people who are well welcomed into the type one community and there have been times where people have said, like, you don't have type one diabetes, like you don't belong here. I don't know. I don't believe in that. That's no good for me. If you're using insulin, you need this help. And that's that. So anyway, let's just look for a second type for diabetes is a proposed term for diabetes caused by insulin resistance and older people who don't have overweight who don't have overweight or obesity. This is a 2015 study. So I think they just as they're studying more and more things, they just keep applying this because now when you get to type five, it's called moody five.

Jennifer Smith, CDE 14:27
Mo D Why is is mono

Scott Benner 14:30
moody. Excuse me? Yes. Yes. I'm sorry. I put one too many O's in my that's mature onset diabetes. Wait, why is my phone making noise Jennifer? I don't know. Somebody wants to reach you. I'm gonna curse here. This can Walgreens okay. You leave a prescription sit at Walgreens for five seconds. And they call you they are up your ass. It's here and get it. It's yeah, I'm like, if I know thank you be there. All right. Have it calmed down now I won't stop now it's good telling me when the pharmacist takes lunch is it noon

Jennifer Smith, CDE 15:11
and they take an hour lunch at least they do at my Walgreens well God

Scott Benner 15:14
bless that's fine but I don't need to hear about it on the machine every time they call like this happened yesterday.

Jennifer Smith, CDE 15:21
See they don't call me they send me a text message well I'm gonna behind don't have to hear anybody if you're

Scott Benner 15:26
listening to Walgreens you screwed yourself because I'm gonna opt out of this you know and I do find it goodbye she goes at the end goodbye goodbye podcast

Jennifer Smith, CDE 15:36
here was very important that she made sure that you know that your prescription is all set. I think

Scott Benner 15:41
it was a computer even Jenny I don't know if it was a heart but okay, so. So Modi is

how about I read some things from the online. I won't tell anybody's name or if I you know if the people are talking about other companies, I certainly won't, won't say them. But here's one. So far one conversation with us med has been infinitely more helpful than every conversation I've ever had with blank blank. Thank you so much for letting me know about us med. Is it possible another person says that it really will be this easy. It's hard to believe when you've had to deal with other companies that make getting your diabetes supplies so difficult. It's hard to believe that anything could be better, but it can be with us med here's what you do. You go to us med.com forward slash juice box get your free benefits check and get started. Don't like the internet. Use a phone 888-721-1514 They accept Medicare nationwide. US med accepts 800 private insurers they have an A plus rating with the Better Business Bureau. They carry everything from your insulin pumps to your diabetes testing supplies and everything in between. They have all the latest CGM Dexcom G six libre two. And they've served over 1 million diabetes customers since 1996. US med is where Arden is going to get on the pod five from us med they want you to get better service and better care than you're accustomed to. US med is proud of their white glove treatment. Give them a chance. Hit the link, call the number 888-721-1514 We're gonna us med.com forward slash juicebox. There are links in the show notes of your podcast player or at juicebox podcast.com. To us Med and all the sponsors. You could even find the T one D exchange there. T one D exchange.org. Forward slash juicebox. Take the survey Dexcom on the pod contour, G voc touched by type one. They're all there. Check them out. Listen, if you have a need for these things, I hope you use my link. That's really it. When you support the sponsors. You're supporting the podcast, I'm not telling you to go buy an insulin pump you don't want. That would be silly. But if you want it on the vaad use my link and one of Dexcom cha cha cha, you know what I mean? A one, two, cha cha three, four, cha cha cha

Jennifer Smith, CDE 18:27
Well, we have time at some point, I will tell you, if I never told you my Walgreens story, I wrote a letter to the head of Walgreens, you

Scott Benner 18:33
wrote a letter to Walgreens several years ago. Let's save that for the end of the year state of the Jenny address.

Jennifer Smith, CDE 18:39
Oh, yeah. That's an interesting story.

Scott Benner 18:43
I want to hear. So is Modi type five. Have you ever heard that?

Jennifer Smith, CDE 18:49
I've not heard Modi called type five. But I wouldn't be surprised if they've defined it within the category of all of the numbers of types of diabetes. I guess I've only really heard it called Modi. Now Modi in and of itself also has many. It's it's very strongly a genetic thing. Right. And it's different from both type one and type two. And the way that it's managed really depends on the type of Modi you have so Modi or type five diabetes. There are there's another little offshoot to that to say you have Modi this Modi you have Modi with these genes you have Modi with these genes, and some of them may be managed. Some of them may be managed with insulin similar to type one. Some of them may be managed with an oral med some of them may be managed with a baseline of a Basal insulin and lifestyle. So there are many depending on what your gene Mody type is, for lack of a better way to describe it. If there is a more standardized, I guess plan for how to help you take control.

Scott Benner 20:09
Well, CHOC Children's Hospital of Philadelphia has Modi as a form of diabetes caused by a mutation of a single gene. The mutation causes pancreatic beta cell to function abnormally, leading to insufficient production of insulin. In some cases, insulin resistance develops. In addition, the pancreas may not produce enough digestive enzymes on this link, they are calling it Modi five. Yeah. And then when interesting when you go back to like, so I just kept googling because I got like, I was like, was there Modi six, and there is Modi six arises from mutations of the gene for the transcription factor referred to as neurogenic. Differentiation one, so then you're that that is what's happening is we're getting into genetics. Now, you're asked, is there a type seven diabetes, a form of diabetes that is characterized by an Auto Sum node dominant mode of inheritance, onset and children or early child adulthood? Usually before 25, a primary defect of insulin secretion and frequent insulin dependence at the beginning of the disease? I'm telling you, I stopped at seven. Because I didn't know where to like, I just didn't know. But let's for fun, let's just change the to eight. And there

Jennifer Smith, CDE 21:26
is there is a registry as well, or I guess it's Chicago, there's a mean place in Chicago, I don't know the name of it. That actually keeps a registry of all people who have actually been tested, and have been given the diagnosis of one of these types of Modi. So it's interesting that it's, it's quite rare, I guess, is the the next thing to bring into this is that don't walk around thinking, Well, I've diabetes, Do I really have like, Modi? Number six? Yeah.

Scott Benner 22:02
No, probably not. Right, or Modi? Eight, which is the slow progressive pancreatic extra and dysfunction, fatty replacement of pancreatic para blah, blah. Who knows there? I'm getting into words. I can't, I can't. But anyway, yeah, I was gonna say the exact same thing, which is why I love you, which is you don't have Modi aid, calm down. And you know, although I might get one email from one person is like, I've got it and then send that email, because I'd love to have you on the show. Because interestingly, I've,

Jennifer Smith, CDE 22:31
I've, again, I've worked with a lot of pregnant or pregnancy, and I've worked with two women who had diagnosed Modi. And it was an it was an interesting, it was an interesting transition through the course of pregnancy, because things changed very differently, comparative to other pregnancies, both type one type two, and even gestational which I have now a lot of knowledge working with things changed very differently along the whole way. So

Scott Benner 23:07
well, then, in your opinion, if someone has type one, and they're treating it like type one, but they have a lot of insulin resistance or something else, at what point do you say can I get the genetic test? And does getting the test help you? Or does it just give you a diagnosis?

Jennifer Smith, CDE 23:22
I don't think you know somebody specifically with a diagnosis of type one who my first question would really be did you have diagnostic testing that showed it was actually auto immune dysfunction, right? Then it is type one, if there is significant insulin resistance, my next step is to say, well, you have Have you ever been tested for PCOS or polycystic ovarian syndrome? Right? Because that is, especially in women. That's a pretty significant reason that many women with type one may actually have some significant resistance over what they think their insulin needs should be based on what their lifestyle kind of looks like.

Scott Benner 24:07
I just wrote down PCOS as another defining idea. Honestly, our conversations today have given me a number of them. Okay, so here's my last question. I heard somebody say this online, and I couldn't tell if they were confused. Or if this was a thing. Can you have type two diabetes and then get type one diabetes? There's no reason you couldn't, right? You couldn't have type two and then have an autoimmune attack? Right? You wouldn't have them both at the same time.

Jennifer Smith, CDE 24:34
No, you wouldn't. And in the grants. Sure. Could that happen? Yeah, I guess. Now, the question also becomes, did the type two ever actually get tested to truly get the correct diagnosis when they were told they were type two. And now things have shifted and they get, let's say, maybe a smarter clinician who's like, Hey, I don't know let's do some testing. And then all of a sudden they end up being Type one there type two, probably did not change from type two into type one. No, no, I mean likely had antibodies all along that initially were never diagnosed the right way. And so they've transitioned to now Yes, being told their type one. But the antibodies have probably always been there.

Scott Benner 25:18
I 100% agree that most people who are going to have go through that process, that's exactly what's going to happen to them. Anecdotally, from what I've heard from so many people, but what I'm saying is, could you not get type two diabetes legitimately have type two diabetes, and then later in life, have an autoimmune attack that gave you type one?

Jennifer Smith, CDE 25:35
You could? I would, I would not leave anything to the realm of not possible in our world.

Scott Benner 25:42
I want to hear from somebody who has had that happen to them. But there is no world where you would. But after that happened to you, would you still now we're just philosophizing, would you still have type two diabetes and type one diabetes,

Jennifer Smith, CDE 25:55
you may still retain some of as you've asked before about resistance, you may still retain some of the characteristics of type two possibly want to hear from those as well. Yeah, that would be that would be certainly interesting. Now, I thought you were going more in the realm of somebody with type two, which I know we haven't defined type two yet. We'll get there. But somebody with type two who let's say, you know, they, they know that they don't have type one, they had a really good doctor, their doctor did do testing and everything. There were no, you know, antibodies or anything there. And they were doing really well with lifestyle and maybe oral medications and whatnot, and now they have to use insulin. That doesn't mean that they're type one. If they just because you have stopped being able to solely make use of oral meds, and you have to start using insulin as a type two. You are still a person with type two diabetes. Yeah. Okay. Why not a person with type one just because you're using insulin,

Scott Benner 26:59
right? You're a type two who uses insulin? Yes. And then a doctor would call it insulin dependent type two, right? Usually, that's how they talked about it. Your chart? Yeah. Okay. All right. So here's the last bit. I get to have more and more people with type two diabetes in the Facebook group, which has been really wonderful because I'm seeing people with type two who use insulin having a ton of success by listening to the podcast. I know people with type two in my own life, some of my own family. I've talked to people for years who have it, I have consistently been stunned by how little people with type two diabetes seem to understand type two diabetes, how little they're taught about it. How often it's enough of a boogeyman in their life that they don't even want to look into it. And, and for me, I just always find it to be sad. I wish if they knew more, they would know more. I personally, I've been dying to have more types who's on the podcast, it's hard to get them to come on. Because really, yeah, it's an I wish they would. Because I would like to, from my perspective, I'd like to have type twos come on and teach me about type two diabetes. I would love to have those conversations just so other people can hear them. But for the purposes of a definition, I want you to tell me what type two diabetes is. Because as I sit here, I wonder if I know. Yeah,

Jennifer Smith, CDE 28:25
I mean, essentially, type two diabetes is not autoimmune. That's one of the first things. It's an impairment really, in the way that body the body is able to use sugar. That's the simple definition of it. Why does that start? There are many thoughts in terms of why, certainly lifestyle is one of the biggest ones that most people hear in terms of, you know, activity level, weight. Genetics can also play a big role in type two diabetes, as well. And why does the body eventually stop using sugar so well, it's on a cellular level, right? It's the way that the body is really responding to the intake of food and breaking it down into your body's main fuel source, which is sugar for most people. The reason for the decline in insulin production happens over a long period of time, which is the reason that many people who are at time of diagnosis with type two, they have often been living with type two diabetes, without realizing that their body was having a problem for somewhere between five to even 10 years. So what ends up happening is that the cells become less able to use sugar. Which what does that do? It leaves more sugar in the bloodstream than should be You there. And the body, body is an amazing thing. It's, it's a self healing machine, it tries really hard to do its best to keep you healthy. So what it does is it sees more sugar, and it tries to ramp up the production of insulin. And for a time, that can work. So people that are having this in this sugar, you know, resistance, essentially, or inaccurate use of sugar, their body is ramping up insulin production enough that their blood tests may or may not show any problems. Which means that again, the doctor doesn't think that that there's a problem there. And then over time, what happens when you overuse anything? It gets tired. Yeah, and so these data cells get worn out from trying and trying and trying and trying to hyper there's that word hyper produce insulin, and they they can't keep up anymore. And so now in terms of testing, fasting testing, or especially Testing, testing, in the post meal time period, those are the points that a doctor could find glucose excursions that are well beyond what a person without any dysfunction in their body should have. So it's kind of a cascade of things that happens over a long period of time. Very unlike diagnosis of type one, which is pretty quick onset for most people. Yeah.

Scott Benner 31:34
We're gonna, I intend to dig into this more throughout the podcast, because in my, in my heart, like, I think, when you have a person with type one diabetes in your life that you're taking care of, it takes a toll on your health, too. And I, I'm trying to think big picture and long term here, but how many people who have young kids with type one right now are going to end up sleep deprived or time deprived and suddenly start ordering out more or cooking from boxes more something like that, and, and maybe they'll end up in a similar situation with type two diabetes down the road, I want them to be aware of it as much as they can. Because that number, like when you hear people talk about how many people have diabetes, there are, and they don't in the world, and they don't distinguish between type one or type two or certain country, the number you always see that's frightening is the Undiagnosed number. Yes, that that expectation of what that number is, is is insane. It really is. And I mean, it is it is type to impact the impact double, once you have it, is it impactful, always with diet, or just sometimes with diet? Like it's not like, like, if you could force everyone with type two diabetes to eat exactly the same way, they wouldn't all have the same outcomes, right?

Jennifer Smith, CDE 32:55
Not necessarily. And I think that goes along with again, where do you catch diagnosis, you know, if the body is then so stressed over trying to do as well as it can for you, for a long time, there, there may have been enough beta cell destruction, that you're never really going to get back to a baseline of no kind of medication, right? some lifestyle changes can last a very long time. But it's it's like anything, it's the sticking to that management plan. And not veering from it. Right. And then I think the other piece that you bring in, in terms of like, knowledge is, the sticking with it is it's a really hard thing, and when you've been sticking with with it, and then your doctor says, well, your numbers are still climbing. And you think, Well, gosh, I'm doing everything. And it was working. What is the point now, if you're gonna throw medication at me, despite my really good efforts at doing everything, and that's where you know, and working with a lot of type two population in the past. There's a lot of like, defeat in that. And the explanation that I always give is, your your type two is a it's a progressive condition. It is. And at some point, you may need medication. At some point further down the road, you may need insulin, it does not mean that you failed, it means that you've had this amount of time that you've really given your all and you've really done a great job to keep your body healthy. So you know what, now when medication gets added, it will likely work for a really good amount of time as well before potentially needing to progress on to another kind of medication or even insulin.

Scott Benner 34:55
I have a recording already done and I have another one coming up with a with Both with type twos, who through the podcast have really astonishing outcomes like really well, a woman with a, an A one C, I just saw her online the other day in the Force. She's so excited, you know, and I was so happy for it. And I've already recorded with her and she's such a character and so wonderful. I can't wait to put it out. And then I have a guy coming on, who not only got his a one CD together, but his blood sugar's and his weight and all this stuff is happening from a podcast that I started, so my daughter would know how to Bolus, you know, like, that's really crazy, right. And as like you and I talking today, I have so many notes in front of me about what I want to do with the podcast moving forward. I just, I can't wait to try to help more people. The I don't know, Jenny, if you know this, but we are recording on the first of April. And we are here, right? Yes, it's April Fool's Day. This is not a joke. But the podcast in the first exact 90 days of 2022 had a million downloads.

Jennifer Smith, CDE 36:05
That's super awesome.

Scott Benner 36:06
it the year before it took twice as long to get to a million in that year. In a couple of weeks, the show will have a total of 6 million. And I think a year from now, it'll be more like 12 million total downloads. That's super, that's super, it's insane. Like I what I see, I see it

Jennifer Smith, CDE 36:29
honestly is super in terms of that's the number of people that it's reaching. I mean, I'm excited for you. That's super awesome. From what you've been able to put out and be able to do. But I'm excited from the standpoint of the people that that means it's helping in some some way they're getting something out of it.

Scott Benner 36:48
That is That is how I think about it. I also think about about paying my bills, but that's a different situation. But I really do, I mean seriously, to be serious, like I really do think about it that way. Like I used to have that. I know I've said it before long time ago on the podcast, it as close to the feeling is I can describe to you. When you help somebody like this when you do something and you see it help a person and I mean really help them like a person with type two tells you they're a onesies, 4.5, or a person with type one tells you, hey, I just ran a marathon based on what I experienced from your podcasts or my A once he's been in the fives for three years because of what I heard from you. It just sounds completely bizarre. I'm telling you that when I reached 10 people, I immediately think, why couldn't I find 100? And when I found 100, I think why can't I find 1000? In the first time I got to 100,000 I thought this could be a million. And

Jennifer Smith, CDE 37:42
you're like, where are all the people hiding? And how can I find them to give them what's important? Well,

Scott Benner 37:47
when you see them when you see what happens for them. And then you realize that the the really one of the only thing standing between them in the situation they're in now in the situation they could be in is just access just hearing it one time. Like you think like my whole, like 24 hours a day should be about I should be walking around with a sign right? Like, says Pre-Bolus on it is your right, I don't know, you know, like you start to have that feeling I have over the years alleviated myself from some of that guilt, which and it was guilt in the beginning. Like I felt like I wasn't helping enough people. And now I just see it as I know, this thing helps them and how do I get it to them. And so the people listening are how it happens. They spread differently. It's amazing share

Jennifer Smith, CDE 38:33
sharing it. I mean, and I think that's, that's an important piece. I mean, I I've met two or three people just in my community who have either mentioned it not knowing who I like, or that I contribute anything Association, but just in passing kind of thing. And I met one actually at our community pool last summer. A mom and her little girl and her daughter had noticed my Dexcom on my arm and I could tell that they're kind of like looking at me and she came over and she's like, we just wanted to say hi because my daughter also has type one and she noticed you know, your your Dexcom and we got to talking and we introduced names and I was like going Jenny, you know and she's like, you're not chatty. Like Jenny in what way and she's like, Do you are you on that podcast? Like me? Yeah, you had your airport

Scott Benner 39:31
moment. That's lovely.

Unknown Speaker 39:33
Did it was lovely.

Scott Benner 39:35
I think the kids call that meta, don't they? I don't know. I don't I don't have time to define meta. We're out of time. But that is

Jennifer Smith, CDE 39:44
just so nice. You know if when you hear back like that, it's

Scott Benner 39:47
it's amazing. I don't know. I don't know another way other than Mike hamfisted comparison to a movie. That's about a real life tragedy. And I even as I'm saying and I'm like don't make this comparison it's not a comparison. I'm Trying to it's that feeling. It's that moment in that movie, where he thinks I should have done more. I used to I used to feel like that constantly. Like, why am I not doing more? And then and then when it starts doing this, you're like, oh, it's working. You know, and I shared that thing with you yesterday. Yes, yeah, that's just insane that a woman was messaging with her doctor. And I want I want to pull it up real quickly. If she's messaging with their doctor about a problem, and the doctor responds, the doctor, the endocrinologist responds, and says something like, Hey, you know, might not be a bad idea to do this. Blah, blah, blah. There's a Juicebox Podcast episode about that. It's number 263.

Jennifer Smith, CDE 40:44
When you texted to me, I was like, and this doctor, like, knew the episode number. I don't even know that I have to look the episode numbers up. I don't even know.

Scott Benner 40:53
I'm the worst person to ask about what's in this podcast. And I'm so busy making it I don't know anything about it. But it's, I saw that and I thought, oh, my gosh, that's incredible. Like, it's only the is a podcast is only eight years old. It only really started flourishing four years ago. And today, somebody's being messaged by an endocrinologist. Hey, listen to this podcast. I was I was as proud as I could have been when I saw that really, really something else? I'm sorry. Did we do justice? Just do an overview of type two diabetes?

Jennifer Smith, CDE 41:22
We did? I think it yes. In fact, I think the only other thing that I think probably would be of interest at some point might need to be added to your plethora of notes that you have there. Now, we've talked a lot about insulin. But there are so many things to get into in terms of meds.

Scott Benner 41:39
Yeah. Do you have five minutes or do you have to go?

Jennifer Smith, CDE 41:43
I have to go I yeah, I would love to but it would be more than five minutes you're

Scott Benner 41:47
you know, I don't mean about that. I what I was gonna say is that I have a list a list of things here from people that they want added to the defining series. Oh, awesome. And the meds was on there. So I'll break this list down and put it in our shared folder file so you can see it cool. But I really appreciate you doing this with me today. Thank you so much. No problem. Have a good weekend.

Jennifer Smith, CDE 42:09
You too. Thank you. Bye.

Scott Benner 42:17
First, I'd like to thank Jenny Smith and remind you that she works at integrated diabetes.com She's for hire, you can get ready to help you with your diabetes. Let me also thank us Med and remind you to go to us med.com forward slash juice box where to call 888-721-1514. To get your free benefits check us med take the survey AT T one D exchange.org. Forward slash juicebox. Find the diabetes pro tips at diabetes pro tip.com or juicebox podcast.com or by going to Episode 210 In your podcast player.

If you're listening to the podcast right now in an audio app, but you're not subscribed or following, please subscribe and follow to the Juicebox Podcast. If you love the podcast tell a friend about it. Best way to help the podcast is to tell someone else about the show. I think this is all I have for you right now. So I'm going to go but you know what I want to say before I leave. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.

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#680 Zach and Nancy

Zach has type 1 diabetes, Nancy is his mom.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio -  Radio Public, Amazon Alexa or wherever they get audio.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 680 of the Juicebox Podcast.

Nancy is the mother to Zach. Zach has type one diabetes, and they're both here on the podcast today to chit chat with me. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your healthcare plan, or becoming bold with insulin. This episode came within a hair's breadth of being called golden doodle.

If you have type one diabetes, or are the caregiver of someone with type one diabetes, and are a US resident, please go quickly to t1dexchange.com/juicebox and fill out the survey. It will take you not long at all fewer than 10 minutes. And your answers which will be easy to come up with like they're not tough questions is what I'm saying are both HIPAA compliant, absolutely anonymous. And, as a bonus, we'll help people living with type one, t one D exchange.org. Forward slash juicebox. This episode of The Juicebox Podcast is sponsored by Dexcom, makers of the Dexcom G six continuous glucose monitor, learn more and get started today@dexcom.com forward slash Juicebox Podcast is also sponsored by Omni pod, the makers of the Omni pod dash and the Omni pod five, Learn more at Omnipod.com/juicebox. Both of these advertisers have some version of a thing you may be eligible for where you get some free product to try out. I'll talk about both of them during the advertisements which will happen in the middle of the episode. Who wants to go first?

Nancy 2:17
I will. I guess Go ahead. All right. Hi, I'm Nancy. I am the mom of Zack and about five years into T Wendy and just happy to talk to you.

Scott Benner 2:32
How old are you Zack?

Zach 2:34
I'm 14.

Scott Benner 2:36
You were diagnosed that nine.

Zach 2:39
I was diagnosed that eight eight.

Scott Benner 2:40
Okay. Just turned 14.

Zach 2:43
You Yeah, yes. This year.

Scott Benner 2:44
Happy birthday. Of course. Alright, well, let's go like this for a second. Zack, do you remember anything about being diagnosed?

Zach 2:56
I remember, whenever my mom found out about this, we were watching a movie. And I was going to the bathroom so much. And my mom was taking like this class on type two, and they gave the symptoms of type one. And so I was going up to the bathroom a lot. And then she No. She noticed that. And so right when we got home after the movie, we checked my blood sugar. I was 400 something. And that's that's it? Basically, I was just going to the bathroom a lot. Nothing serious. I didn't know at

Scott Benner 3:37
the time, Nancy, what made you Why are you looking into type two?

Nancy 3:40
Well, my mom had been diagnosed with type two for many years and just decided to take a class on her diet and how to possibly reverse some of it, you know, and and so I just went with her to support her and yeah, they were just talking about the signs and symptoms. And that week, which is the week before I my husband had also been diagnosed with type two and so I was like, You know what, I think we need to have a meter in the house since his doctor had never recommended he have one. So I bought one and just started recognizing some of the symptoms.

Scott Benner 4:29
What Nancy what movie were you watching? Zachary

Zach 4:34
what was it? Batman vs. Superman? Yeah.

Scott Benner 4:39
Do you remember the movie at all?

Zach 4:42
Fate like some parts? I don't remember because I had to get

Scott Benner 4:46
up. Also wasn't a great movie. Yeah. At least it didn't ruin their wisdom. When Arden was diagnosed. My daughter was diagnosed a long time ago. Zach she was two and that was 2006 And back then to watch a movie when you weren't in your home or at a movie theater, you had to have like a little portable DVD player. So we had one of those. And my daughter watched, hold on, excuse me, I apologize. My daughter watched sky high over and over and over again. And it took years afterwards, if it would come on TV, it would make my wife really sad. And so because it was on in the hospital, like, you know, as my daughter was hooked up all the tubes and everything, and, and just recently, they watched it together again. And I thought it was a big triumph for my wife. Actually, I don't think you're gonna have the same problem with Superman versus whatever.

Nancy 5:42
He probably will not watch it again.

Scott Benner 5:45
That was why I thought you wouldn't have a problem because I don't think you're gonna watch it again. How could they make those Marvel movies? So well, Zack, and nobody at DC figure out how to make a movie.

Zach 5:56
I have no idea.

Scott Benner 5:58
I don't either. It's fascinating. It's just like, like, they're right there. I know. You don't want to copy them. But like, you could, like, can you glean something from it? Like, I don't know how you ruin a Superman movie? I don't know. They did. So anyway. All right, Nancy. So everybody in your life gets diabetes of one form or another all at the same time? And did you guys think? Like, like, did you? Was it like a, like a horror movie? Was everybody looking around going like, Oh, I wonder who's next? Or you were focused on at that point?

Nancy 6:30
Yeah, I was focused on Zack, you know, I mean, we're overweight. Kind of, you know, my husband and I, and not that my kids were really severely overweight. But, of course, I was thinking, man, what did I do? You know, I cuz I didn't know at the beginning if it was type one or type two, or, or what you know, and, and so it was, at first a lot of guilt until, you know, the next day when they said, Oh, no, this is type one. This has nothing to do with anything you did. And and then it was just focusing on learning about that.

Scott Benner 7:09
Did you have trouble believing that Zack? Like did you think it was something you did? Or how did you feel about it?

Zach 7:16
Um, I didn't feel I didn't think about it very much. I just I didn't know what was going on at the time. I just the the question that I asked right when we got like two that there. And then they said I had type one. I didn't know it was like a permanent thing. And so I'm like, Wait, so how long do I have to deal with this? That's probably the only thing. I I was just curious. Like, how I had to deal with it, how long I had to deal with it.

Scott Benner 7:48
I'm always interested about this. I don't get to talk to enough younger kids that have recollection. So did someone explain it to you? Or did you figure it out through the conversations?

Zach 7:59
Um, so they had this separate room in the hospital for us to learn stuff about type one, like, what foods have carbs what foods don't have carbs? The fat and protein? And we, we were like learning carb counting? Kinda. Yeah. And then we didn't really use it in the hospital, though, because we were just on shots. But it was probably just for the future. Yeah.

Scott Benner 8:27
What isn't that something Nancy that that? Did you have any record any knowledge that he didn't understand what was happening to that level?

Nancy 8:36
Um, you know, at eight, and he's a pretty happy the lucky kids still is kind of and, but he never voiced. Not understanding that it was forever until we got home. And it was a couple of days later. And I that broke my heart. You know, whenever I had to tell him no, this this is going to be forever this until there's a cure. But I do not remember him saying anything. At the hospital

Scott Benner 9:14
that had to be more upsetting than paying for Batman versus Superman.

Nancy 9:21
Definitely, yeah.

Scott Benner 9:22
Terrible. Okay. Yeah, yeah. Wow. That's, uh, I mean, do you hear it, Zach as we're talking about it, how bizarre that is, like, like, not unexpected and nothing you did wrong, obviously. But your mom and the doctors all imagine they make this assumption that people understand you don't mean that. Oh, I know what type one diabetes is they? I don't have to explain it granularly to this kid, but this is never gonna go away is a it's an impactful thing. Do you remember that conversation at all? Zach when your mom told you that? This is forever.

Zach 9:56
Um, I don't fully remember it. But I do. Remember Remember, she told me like, yeah, it is going to be forever. We just need to manage, like, how we deal with it. And that's basically all I remember, I don't have a lot of that conversation.

Scott Benner 10:14
Yeah, I have to tell you that very recently, I had a conversation with my son who's 21, where I still found it upsetting when I, we were just talking about health in general. And I said, you know, I forget how we were in the car, and he was struggling with something I said, you know, you're lucky that there's, you know, a medication for this thing I said, because a number of years ago, there wouldn't have been, you know, this would have just been a burden you would have carried forever. And I said something like, couple 100 years ago, you know, the, the group would have been asking you if you wanted to be put down, or if you want to just be left behind as we moved on to the next encampment, or wherever we went. I was like, you've no idea how, how far things have come. And that conversation led to us just saying, like, you know, there was a point in time in, in modern, you know, not so long ago, history where even if you broke your leg, you were probably dead. You know, like, just like, what are you gonna do? It's, it's just, it's crazy how far we've come in such a short amount of time, but how much, especially when we're younger, we just think that the body we got is, it's just gonna be like this forever, and nothing's ever gonna happen to it. So I'm comforted to know that Zack doesn't really remember the conversation that much.

Nancy 11:32
Right? Thank you.

Scott Benner 11:35
Zack, how would you describe yourself now five years in? Are you? Are you comfortable with diabetes? Is that a problem for you? How do you think

Zach 11:46
I it's not a big problem. Sometimes, like if my blood sugar's below, I just I can't think straight like, say I'm at school and I'm doing a test and my blood sugar's low, I need to do something. But like, at home, it's pretty normal. It's just like one click away on my phone. And we do need to do carb stuff, though. But it's pretty easy.

Scott Benner 12:11
amongst your friends, is it talked about? Or is it just sort of a thing that exists?

Zach 12:16
It's not really talked about in my friend groups. You know,

Scott Benner 12:19
if you got incredibly low amongst friends, do you think they'd have any idea how to help you?

Zach 12:26
Um, a few of them, maybe, but because I've mentioned it once, but we don't talk about it. They know that I have it. And I think I've told them, how to how I deal with it. But I'm not too sure if they fully know.

Scott Benner 12:45
Gotcha. And Nancy leaving the hospital, what kind of technology do they have for you?

Nancy 12:52
We, we did not get Dexcom until he was about six months in I think, and of course, MDI. I think we even we didn't even start with pins. We started with syringes and vials and my husband, he's an IT guy. So he had he made a an app for an Android phone at the time, just so we could put in his carb ratios and stuff. And so it was a very simple thing. Only we used it really and you know, so we use that and the grandparents would use that, you know, to help when watching him but we got Dex Dexcom about six months and Omni pod. Was that a year end? Zack? I can't remember.

Zach 13:47
Yeah, I'm pretty sure it was a year and

Scott Benner 13:50
how do you like using a pump Zach versus injecting?

Zach 13:54
Oh, it is way better? It like getting the shots over and over again. It's it's, it's it's extremely like, what's the word? Tedious, or? Oh, yeah. It just happened.

Scott Benner 14:12
We're on the same wavelength. I was thinking I was thinking you were gonna say tiresome. So basically, you and I have synced up already in only 12 minutes. I know how you're thinking. Excellent. So just repetitive and cumbersome. Yeah,

Zach 14:29
but the pump like it just replaced it was replaced three days. Well, before it was replaced three days. It was like one day and then we had to change it because of the insulin we were using. But now we have like u 200. And we are now changing it three days, which is way better.

Scott Benner 14:49
Oh, you're using a how do they how do they Nancy How did they categorize that? They call it stronger like potency. How do they talk about those insolence.

Nancy 15:02
I, I just always thought about it is that one is a double strength? You know, I don't. And I asked for it. I don't they didn't really bring it up. So I don't know if there's a particular way they, you know, really talk about

Scott Benner 15:17
how you think about it, though. So for people who don't, I mean, we never really talked about this right? There's you 200. There's you 402. Is that right?

Nancy 15:27
I think maybe you 500 I'm not sure. Maybe I'm wrong. But yeah, Zachary was, he's always used a lot of insulin and had high Basal rates. And we were going through pods, like before, 48 hours was even up,

Scott Benner 15:47
because and because the pod holds 200 units, that just wasn't enough for you. Right?

Nancy 15:51
Right. Right, he was about 100 units a day total. And after we started looping a couple of years ago, and about a year in, or maybe a little less, we were seeing a new doctor, because the other one didn't really want to cooperate with my requests. So I, we were seeing a new doctor, and I think he understood that we had a very good handle on diabetes and how we were managing. And so he went ahead and let us have the u 200. And it has made a world of difference and just how you don't think of changing a pot every two days as being cumbersome, but it's it's just allowed more freedom and, and less thinking about diabetes. So it's been really good for Zach, I think,

Scott Benner 16:48
Nancy, can you give me some context on why Zack needs more insulin? Or do you not know?

Nancy 16:54
Um, you know, I'm not really sure. We, if he's been always involved in some sort of sport, usually, you know, he used to play baseball. But not very competitively. It wasn't like a all the time practicing kind of thing, but possibly because of his inactivity, or I really just don't, I have no idea. But that's just the way it's always been for him. If they

Scott Benner 17:29
ask you. Do you get judgment from the doctor? When you ask for it? Or you don't? I mean, like, is there an underlying inference of like, you're taking in too many carbs?

Nancy 17:41
Well, you know, I with the previous doctor he's all he was more concerned with, well, why do we want to change anything because Zach's a once he had been coming down at that time, before looping, we had been doing we listen, we started listening to your podcast, and I read sugar surfing around the same time and, and his agency was coming down and I want to stay at a few years ago, his a one CD was maybe six point a, you know, something like that. And then whenever we would ask the doctor about it, it was about changing the insulin. First I asked for FY ASP, and he's like, Oh, no, we're not doing FY ASP, even though it had already been approved for the pod. And but he never mentioned anything about oh, he's using too much insulin and Zach's never been a very heavy carb eater

Scott Benner 18:55
yet. I want to say like, I'm not saying that I that that was my fault, either. I'm just trying to see like where this conversation might end up going if you start having it cold in the doctor's office. So can you like for context that do you know about how many carbs you eat in the course of a day

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Zach 22:49
Versus the day like on a regular day, I'd probably eat maybe 80 to 100 carbs.

Scott Benner 23:05
See that's not crazy, right? Like there's nothing crazy about that like and I'm going to do some math for a second. That's always fun. When I do math apart. Let's just say it's 100 carbs. We'll just say that for fun. Do you know what your insulin to carb ratio is? One unit covers. However, let me check. I'm interested Nancy Do you know don't say if you know

Nancy 23:34
well, if if he was on you? 100 right, it would be 123 or one to four. Okay. And and I like looking at Nightscout I know that his regular average intake of carbs is about 150 a day. Okay, still not very high. I don't think

Scott Benner 23:52
Arden's one that four and a half I think. So, if we divided by just for for fun, then 25 units for 100 carbs, fees taking in 150 a day. What is that? 3540 ish, and that is Basal. What's your Basal rate sec.

Zach 24:16
Basal rate is 17.8 units for the day.

Nancy 24:26
A day. Yeah. Okay, that's a view 200 though. So if you know we're doubling now.

Zach 24:33
Yeah, so 34 35.6 35 divided

Scott Benner 24:37
by 24. So your Basal would be like 145. There's nothing crazy about any of this. Like

Nancy 24:43
Well, I do have to say though, he started playing tennis over the summer. And we have seen some amazing reduction. It was crazy the amount of reading Shouldn't we've had to make over the last several months? Yeah. So maybe it was the inactivity.

Scott Benner 25:08
What's crazy is that I can't hit a tennis ball saved my life. You can do it

Zach 25:19
decently Yes. Yeah,

Scott Benner 25:21
I can't do it at all. I've I've fairly good hand eye coordination. And if you hit a tennis ball at me with a tennis racket, I just don't I don't hit it with. I don't, I can't find it. Just the ugly and horrible. So, okay, so you, do you think? Do you think he needs that you 200 Still not that you're not getting rid of it helps anything. But do you think he could get away with 100 at this point?

Nancy 25:51
He might. But some of the things that I've noticed, that I really like is, you know, it takes half as long to get a Bolus in with Omni pod. You know, if we were talking about let's say it's a large meal, and it's a 20 unit. Bolus, have you 100. It's gonna take, what 1618 minutes or something like that to get the Bolus in using you 200 It's half the time. Yeah.

Scott Benner 26:25
So the pod delivers the insulin more slowly, I think so that it has time to disperse once it's under, under the skin, right? Because at times, so you don't get tunneling. And it doesn't it doesn't come flying back at it. So that's a great point. So just mass mass of liquid or volume, volume of liquid isn't half. Oh, cool. All right, that makes sense. I like that idea. I've never considered this before. Like, it's funny. Like, I mean, Arden's Basil is probably like one right now an hour and and she's one to four and a half. So I don't think her insulin usage is really that much. Like her needs are that much different than than Zach's really. But you're making a lot of good points. That's cool. All right. I didn't want to. I don't want to belabor the point. I think it's interesting. Yeah. Zack, did you notice your needs change? As you got more active? Or did someone have to tell you did you put two and two together?

Zach 27:24
Um, I'm pretty sure I put two and two together. i No one like specifically told me but like people did hint. Well, my blood sugar inted at like, me, like needing less insulin, because I kept going low and playing tennis. And so I guess that meant like I needed less insulin before. Like, before meals. Wait. So I'd need less insulin on the meals before activity. So I don't drop.

Scott Benner 28:04
Okay. All right. And you're looping, right, Zack, do you have to make any overrides for tennis? Or is the loop handling it with your current settings?

Zach 28:15
Yeah, we have a tennis override, or the very active override, but it varies. One has less insulin, but it depends on what my blood sugar is going into it. So

Scott Benner 28:29
how long before your activity? Do you set the override?

Zach 28:34
Maybe 10 to 15 minutes prior

Scott Benner 28:38
you set off when you're done? Or do you like it to end before you're finished?

Zach 28:42
We set a timer on the override for two hours. So that it will just turn off automatically. How long status? About two or one and a half hours?

Scott Benner 28:56
Okay. All right. Excellent. You figure that out on your own? Or did your mom help you?

Zach 29:01
My mom helped me.

Scott Benner 29:02
How much did this does your mom still do day to day? And do you like that? Or do you like what do you want to have happen as far as control of your insulin?

Zach 29:14
I'm uncomfortable with her helping me because I I'm not too sure about like, if my blood sugar is low. What if like, my blood sugar is on like I don't fully know, like what my blood sugar is going to do at times. Like sometimes when there's a meal. We use like three hour and then four hour, but we split the carbs up so sometimes I think it's all taco but there's fat and protein which we need to account for which mom?

Scott Benner 29:52
Yeah. Oh, that's excellent. And you're happy for your mom to be helping? Yeah, okay. I wouldn't be too bad. otherwise, I would not like don't. If I was you I'd let her do it as long as she wants. You're kind of young still. But do you think about college?

Zach 30:11
Ah, not yet. Not really. The one thing I've been thinking about is that night time, whenever I'm by myself, it's going to be hard to control my blood sugar.

Scott Benner 30:24
Okay, so that's a concern of yours. Yeah, yeah. My daughter has been messing with learning some boluses this week. And I said to my wife was like, it's gonna kill me. Because she goes to bed. She's like, I did it, then I'm up for like, another two hours fixing what she screwed up, which is, which isn't too bad. She's good. She's figuring it out. And then I just kind of go back to her later. And I'm like, Hey, right here. Can I kind of point to our graph a little bit. I was like, you just needed to do this or it's Halloween now give coming up. And there seems to be these little bite sized Milky Way dark bars in a little candy dish. She's been like, doing flybys on those once in a while, you know? She's like, I Bolus for them. Like when she's like, you know, when I ate it. I was like, alright, well, if your Pre-Bolus that he can sleep? Do you have trouble with Pre-Bolus thing at all, Zach, or do you see the benefits?

Zach 31:23
Um, so I see why we need to Pre-Bolus but it does sometimes get on my nerves, because like, I really want to eat something like I'm hungry. And but then I have to Pre-Bolus because it needs the insulin needs to go in. So that the carbs so the carbs and insulin are like, meeting at the same point, instead of the carbs going first.

Scott Benner 31:50
Zack, do you know that? And not don't get me wrong. Okay, like, I'm not weepy. But I just got like a little happy sadness inside of me, because you're using my words that I'm assuming you got through your mom. Is that how that'll happen? Nancy?

Nancy 32:04
I don't know. You know, actually, we met you one time. When you were in Atlanta for a JDRF thing. Summit.

Scott Benner 32:13
May I say real quickly. I was fantastic that day. Am I wrong?

Nancy 32:18
Excellent. Excellent. But so I'm not sure if he's, I mean, of course, I have mentioned it also. But maybe he's remembering when you went and talk to the youth there that day. Oh,

Scott Benner 32:32
Zack, you were in that room?

Zach 32:35
Yes, I was. And that those are the words that I remember you like talking about you had this board with the graphs. And you're saying like, Oh, we need to make the carbs meet the insulin, because if the carbs going first, then the insulin won't have enough time to like, get rid of all the carbs.

Scott Benner 32:52
Exactly that that that's stuck with you all this time. That was before COVID. Right? That was right before COVID? Yeah. Zack, I'm like a hero, aren't I? Yeah, just teasing. You. know, I really enjoyed that. This is one of my favorite things about going and giving talks is that I like I like saying it to the parents and then saying it to the children separately. Because it was act this is helpful that you can answer a question for me. The reason I the reason I do that, is because it's my expectation that when you get home, if I don't talk to you, like if you're just off in a room coloring, and I realize you're 14, but you know what I mean? Like if they stick in some kid's room, right? And then your mom, your mom's off listening to me. And I'm all like bold with insulin tug of war, and I'm saying stuff like that, then you get home. And you haven't heard me that when she starts saying it. You probably think this lady with her ideas about my insulin again. But I Yeah, right. But my idea was if I tell the kids to that when the parents are talking about it, there'll be some common starting ground. And did that actually work?

Zach 34:02
Ah, yeah, I think so. Right? Right after the entire like Summit, we got in the car. We talked about what we learned. And I'm pretty sure my mom brought up your thing, but I knew what she was talking about. Because you were you were talking about it with my group. And so, yeah, that sparked conversation. And we talked about that.

Scott Benner 34:26
So happy. Really, mainly, I'm just amazed at something I thought of actually worked, but because, Zack, listen, when you do things differently than other people, here's a life lesson for you. I know it's great when older people tell you stuff like this the first time I don't know if you've ever heard the words fake it till you make it. I think it's an AE reference. So I'm hoping you haven't heard it yet. But it just it just means like, you know, be confident about things and until you are the person you want to be. Say you're that person And the first time that I spoke somewhere, I said, Well, I would like to. So I don't know how common this is. Most people like go into something and they speak for like a half an hour and they leave. Isaak, I'm not getting on an airplane, let alone a car to talk somewhere for a half an hour, because I'm chatty. And so I need more time, right? So I tell me, so when I set up the speaking events, I do a morning talk, I do a mid afternoon talk, at afternoon talk, that's a q&a. And then I go talk to the kids, I speak four times during the course of the day. That's not because somebody told me that was the right way to do it, or because I even knew that was the right way to do it. It's what I imagined was the right way. Go in talk to people in the morning, give them like a kind of like a general overview of the ideas and a couple of samples. So they can think like, oh, cool, I would like to do that. Maybe I'll find this guy again, speak again at lunch, because you've got everybody captive, right? And then you know, and then you go over, like the finer details. So that they can think like, oh, well, that guy did it. Maybe I could do it, and then do a q&a later. So that once they've had time to kind of ruminate, they can come back and ask questions. And then my last idea, talk to the kids that when they get home, there's no I mean, less resistance. It's always my assumption that if you're coming to hear somebody talk about diabetes, you're not there because things are going great. You know what I mean? Like, you know, people with like, five, five a one sees aren't like running around asking people how insulin works and stuff like that. And so when I thought of that, zack, zack, you ever curse? I don't want to get you in trouble. Rarely, yeah, I just pulled that out of my ass. You know what I mean, man, like I was on the phone with somebody. And they're like, What do you want to do? And I made don't tell anybody that I made all that up. It was on the phone. It isn't something like I masterminded in a lab. I said it out loud to somebody. And as I was saying, and I thought, Oh, that makes sense. And then I paused like, I wonder if she's gonna let me do this. And then she did. And I was like, oh, and then I went and did and I'm like, Oh, I think that worked. And then I did it again. And again. And again. Yours is the last time I ever did it because of COVID. And I'm just really, like, I'm thrilled it worked out for you. What is your agency's EQ?

Zach 37:29
Was it 5.6? Last time?

Nancy 37:31
Yeah. Yeah,

Scott Benner 37:32
that's legit. Congratulations. Seriously, man, good job. It's not easy. Like I know, it can start feeling like oh, this is how it goes. And it's normal. But there are a lot of people walking around with they'd murder you for that a one sees that? You know, maybe mentor people would be people would still, they'd at least break into your house for like, that's a really, that's a legit thing. That's well done. Yeah, that's you and your mom. Are you guys a team?

Zach 38:03
I think my entire family other than my, my one sibling. But yeah.

Scott Benner 38:09
Real quick. So some siblings are helpful, and one of them isn't?

Zach 38:14
Well, I only have one sibling. Oh, they kind of help but

Scott Benner 38:21
I just, I was just hoping to get you to badmouth a sibling, but since that's not what's gonna happen, we can move on. That's fine.

Nancy 38:27
His his brother is two years older than him. And he's six, almost 16. So not too involved in being helpful about this diabetes?

Scott Benner 38:41
I don't know. I mean, do you really expect your brother to be helpful?

Zach 38:45
No, not really.

Scott Benner 38:46
I wouldn't either. Yeah, yeah. Yeah, I'm with you. Like, do you need help?

Zach 38:54
In certain areas, yes. Like the carb counting, and like splitting the carbs up with like, the long absorption time and the shortened function time. But other than that part,

Scott Benner 39:05
no, you don't need help. Like, like from like, like you're buying me. What would your brother help you with?

Zach 39:11
I don't know. He would probably just be staring at my phone. Wait, why are you doing taco? Yeah, that's three hour absorption time.

Scott Benner 39:21
Yeah, yeah. Yeah.

Nancy 39:23
You're not eating tacos.

Scott Benner 39:26
He probably wouldn't be three tacos.

How? How are you overnight? Is there stability with the loop overnight, Nancy?

Nancy 39:35
Yeah, you know, um, my husband takes the night shift. I'm going to be honest, and he's just a night owl and I at 10 o'clock I'm out. And but, you know, he was having some lows. Like when I was talking about we've had to reduce his insulin Basal rate a pretty good bit and he was having some lows, but overall, yeah, he's pretty stable overnight.

Scott Benner 40:04
Huh? Cool. That's excellent. As far as you know, but you're asleep.

Nancy 40:08
Well, I, I, I know. Believe me.

Scott Benner 40:14
Nancy, how would you work that out? Is it something you can say in front of your son or No?

Nancy 40:22
Listen, this is how it all just happily worked out. So

Scott Benner 40:26
I think you're full of crap. But okay, that's fine.

Okay. That's hilarious. Zach, I'm going to ask you like a ham fisted question that I don't usually ask on the podcast, because I don't like to say I don't. I don't like my podcast to sound like everybody else's. But for a half a second, if, if you if somebody asked you to describe what it's like to have diabetes, what would you tell them?

Zach 40:59
That's a difficult question. Um, I would say it's your, your it's basically life, but just a little more numbers. And you have to manage your life life a little more? Well, okay. I'm like, it is a difficult question. Alright. Take your time. Ah I, I'd say. I mean, for the first year, a few years, I mean, it's difficult to like comprehend, like, the like what you guys need to do because like, first there's carbs, then there's the Basal rates, like for how much you need throughout the entire day, even without the carbs and you need to add the carbs with the Bolus. And then you have to figure out the Bolus from the carbs. But after you get past that stage, it's pretty easy. All you need to do there is just like, add the carbs out. But it's, it's not that hard to live with. It's, it's, it gives me some perks to

Scott Benner 42:24
go ahead. What.

Zach 42:26
Okay, I'm perks like meeting you. Or

Scott Benner 42:33
I start your sign. You don't have to you don't think kiss my ass. Zack just is there anything good about having diabetes? Are you just trying to be polite? What's going

Zach 42:42
on? I mean, it's true. Yeah.

Scott Benner 42:46
It opened for people. Like it sounds weird. They don't know how great I am. You know, made me. Yeah, yeah. You met me in person. You know, it's, it's an amazing, it's experience. Did you hear angels singing when you saw me or no? Did that not happen?

Zach 42:59
Yeah, there were in the background, like in the corners of the room. And then like, there was just like spotlight on you in the middle of the room.

Scott Benner 43:06
A lot of people report that that's why I asked. So yeah. How did you like Jenny? Nancy, how did you

Nancy 43:14
like? Yeah, yeah, I enjoyed listening to her. Definitely.

Scott Benner 43:18
Oh, not as much excitement for me.

Nancy 43:21
We were, you know, we were already doing really well, with agency and managing and everything. And so I don't know if I could take away as much as other people. And maybe that's making me sound like I'm full of myself. I don't know. But, you know, but definitely, I enjoyed, you know, listening to her. Cool.

Scott Benner 43:49
I have to admit, that one blew my mind a little bit. The Atlanta one because there were there were a lot of people there that traveled a great distance to get there. And it flipped me out a little bit. So, you know, I was like, wow, like they repeat their bag. Remember before one of the talks, people we were talking before, before we got going and people were saying how far they had come and some people drove like, from different states and wow, multiple hours. And I was like, Oh, that's awesome. Now, you think that but it's a lot of pressure. You're like God, they really, I better say something important. Right? Imagine if I freeze up, Zach. And all of a sudden, like people are like, Hey, I drove here from Tennessee. What are you doing? Let's say something. But there were a number of people there that were there to meet me, which that was the first time I experienced that on on such a significant level. Like that. So many people told me I just came here so we could say hello. And that's when I recognized. It's one of the times I recognized how impactful the podcast had been that people would do that was kind of staggering to me actually. And I wasn't worrying Zack. Now, excellent.

Zach 45:03
You were talking about an insulin cell and a carb cell like doing a tug of war?

Scott Benner 45:10
I am entertaining. I hear what you're saying. Yeah. Oh my gosh. Alright, so. So Nancy, then most of what you learned, you learned through the podcast,

Nancy 45:24
that and surfing and shiver surfing, I kind of they're very similar, you know, and just the way you think about it. And yeah, I, I do have to say, I'm pretty disappointed with the education that you get from, like, the endocrinologist and, you know, I mean, at the hospital, they give you the don't die advice. But you know, I felt like there had to be more because it was such a roller coaster with their instruction. And so at like, a year and a half in, I just started seeking out whatever, I could find information on how to do it and found your podcast. And that just I joined a bunch of Facebook groups and and

Scott Benner 46:22
yeah, Was that helpful, like meeting other people online?

Nancy 46:27
Sometimes helpful, and there are some some groups that are helpful, and some that are more people just asking for help, you know? And

Scott Benner 46:39
they don't always have the answers. You're saying?

Nancy 46:43
Not not all groups are the same? No, there are some really great ones. And I do feel like the podcast juicebox group is it's been great. I tried to reach out and help people whenever they need it. I'm, you know, of course, we're part of the looped group on Facebook. And I used to be a mentor on there. And I'm still mentoring several people, but just kind of was overwhelmed with how many requests so I don't know how you do it. But yeah, so I just, I try to help people mainly now on there, but I did learn some on there, too.

Scott Benner 47:25
That's interesting. Tell me a little more about that, like the, you see, you're trying to help people online. So I'm assuming you amassed this knowledge, and you suddenly realized that Well, I can explain this to other people, and this would be helpful to them. And that's something you wanted to do.

Nancy 47:41
Yeah, I just I felt like I, I would feel bad hearing about people's roller coasters or, you know, just struggles and knowing that there's a way to avoid it. I wanted to share and help them and you know, of course, with looped in with DIY loop and kind of being responsible for making your own setting changes anyway, because most endos won't really help with that yet. Just helping them you know, following their kids Nightscout. And being in regular communication about that I just, I just feel a responsibility to help people.

Scott Benner 48:29
How did it become overwhelming?

Nancy 48:32
Well, you know, because when I mentor someone, I can't just look at their Nightscout once a day, I would be looking at every meal and communicating with the parent most of the time, you know, Hey, what did you have to eat? Well, how did you enter the absorption and when you have when you're doing that, for five or six people at a time, every day, it can get overwhelming. And last, right before Christmas last year, I just decided I needed to remove my name from the mentorship tab and just kind of continue helping who I was already helping. And so that's every once in a while, if I see somebody asking questions, and I feel led to help them I'll send them a message but I don't get more requests.

Scott Benner 49:32
Gotcha. Yeah. Did you find that people wanted to stay with you longer than you felt like they needed you?

Nancy 49:40
Sometimes, and I think it's been a learning process for me, of how to impart more of my knowledge about it. And let them take over more, you know, instead of just continually just helping them or telling them how to make the adjustments,

Scott Benner 50:05
I find that after you're at it for a while, it's very it's more impactful to ask them questions that you know will lead to the answers you were going to give them so that they can find the answer on their own or at least feel like they did. And then they can start it, it's easier for them to wire together, they start putting two and two together easier. Like I do it on the Facebook group to like, there's sometimes people ask questions, and I know the answer. And instead of telling them the answer, I asked them a question that leads them to the answer. And then you're not just teaching them you're teaching the other people that are watching as well. But how do I do it? I mean, I don't say yes to everybody. Right? There are people who email me that I'll get like, I sometimes answer an email six weeks after I receive it. And the the trick to that is to you have to let go your guilt. Yeah. Did you feel real driven by guilt when people ask questions? Like you had to get back to them? Or it was unfair, if you didn't like that kind of stuff for no.

Nancy 51:15
There is no not getting back to them. For me, yeah, so definitely, you know, I just I feel led to help them, you know, and so, yeah, I guess there was guilt if other things were going on, and I couldn't, you know,

Scott Benner 51:37
Zack, can I ask you, and you can be honest, your mom won't be upset if you're honest. Did it bother you that she was helping other people? Or did you like it? Or do you not even really not even aware of it?

Zach 51:49
So I was aware of what I was aware of it. I just, I didn't I thought it was fine. I thought it was good that she was helping other people.

Scott Benner 51:59
Yeah, yeah, you just you did. But you didn't have like a, like, Why isn't she helping me?

Zach 52:06
No, she she helped me as well. Yeah. But she just had other people to help as well.

Scott Benner 52:12
Did it wasn't noticeable. Like, it sounds like she was spread a little thin. Did you feel like that? Like was she like, at eight o'clock at night instead of where she normally is? Was she helping someone or on the phone with a person or something like that?

Zach 52:26
Sometimes, but so sometimes whenever, like, late at night, whenever she was dealing with a one family. Sometimes she just like, tells me like what's been going on with them. And my she kind of complained or not complain, but like, tells me what their problem is. Right. And I think it's kind of funny, but I mean, it's not funny. They do have a problem. But

Scott Benner 52:57
what do you think, Nancy?

Nancy 52:59
No, I was just thinking I was venting. Like, oh, why aren't they getting this? You know? Yeah,

Scott Benner 53:07
yeah, it's, um, I would say that one of the things I'm more proud of is, is you're being attacked. Zach, get out of the bed and lock the door. Oh, boy.

Unknown Speaker 53:21
Oh my gosh, excuse me. Hold

Scott Benner 53:22
off. Are you in Canada? Zack? What's going on? Zack, you're not Canadian. Are you? No, no. All right. Where do you get to? Where do you get a wolf from? What is that kind of dog? Is that

Zach 53:37
golden doodle? My dog is crazy. He is runs around slamming into like, the the couches, the table. Anything he can see. They don't

Scott Benner 53:53
tell you. The dog. Nope. What do they say? It's a hypoallergenic. Yeah, that's what they said doesn't shed.

Zach 54:03
That's exactly why we got it. My brother is allergic to dogs and cats.

Scott Benner 54:07
Oh, so Nancy, you get a dog that doesn't shed and is hypoallergenic but it runs into the furniture. What is it? What actually the dog was that? Zach said the dog runs into everything. It's crazy.

Nancy 54:22
Man's into everything. He does shed. The Shed. Yeah, well, we thought so too. But we paid a lot of money for a shedding dog.

Scott Benner 54:37
And it's got a stupid name. No offense. Other people have won. I mean, golden doodle. How do you say that with a straight face to people? It was that dog? Oh, it's a golden doodle. And he's black. Really? Yeah. Was he supposed to be another color? Did you did you I'm about to say did you buy him when he was black? I know he's alive. I'm supposed to say get him but did you? Did you? I don't know.

Nancy 54:59
Yeah. We picked him he was black, but his, the poodle in him is more black. So he just carried that trait but he's still golden retriever and poodle mix.

Scott Benner 55:14
My mom's poodle tried to bite me when I was a baby. She got rid of it right away. She's on my, on my team. You know that dog went right to the moon. I don't even know if they they put it in the trunk of a car and drove into a lake or something. It was. Oh, boy. It was the 70s Zach. You don't even you can kill people in the 70s didn't even matter. You're allowed to smoke in a restaurant in the 70s. Zach. Exactly. How many people do you know that smoke cigarettes?

Zach 55:41
Um, not many. Right? Not Not a lot,

Scott Benner 55:45
right? When I was your age, everyone I knew smoke cigarettes. adults, children, babies. Puppies didn't matter. Everyone had cigarettes. Now they don't. Can you imagine? Yeah. Sitting in a restaurant with like four people smoking at a table.

Nancy 56:03
Now they vape. So

Scott Benner 56:05
they do it interesting. They do it indoors? Well, no.

Nancy 56:09
I can't remember if vaping is illegal indoors to or not.

Scott Benner 56:15
Exactly. vaping. Or, you know, sec, what if I asked you a string of embarrassing questions in front of your mom right now? I won't do it. Don't worry. It's not a big deal. Thank you. Yeah, no problem. You got your eye on any ladies. Anything going on there? No, nothing? Not yet. No, you're thinking of the future? How you how you think it is? I'm sorry? I didn't mean to be presumptuous. In any guys. Anything like that? No, no. All right. Well, let me know if something pops up.

Zach 56:49
Okay, I'll email you.

Scott Benner 56:50
I think Yeah, send a note. That's a good idea. Because what I need is the government coming and finding an email from a 15 year old that tells me that he is interested in somebody, right? Because that won't look anything. Don't never email me. Zack, what are you talking about stopping?

Zach 57:05
Being sarcastic. I'm not going to email you about my relationship status.

Scott Benner 57:11
If you do, I'm calling your mom and I'm telling you there's something wrong with you. Okay. Nancy, is there any other autoimmune in your family?

Nancy 57:22
My husband has hypo thyroid.

Scott Benner 57:25
That's a yes. What else? We got? Hashimotos?

Nancy 57:29
I don't think so. No. I had like, my mother has hypo thyroid. And both of her parents had it. But no, nothing else that I can think of

Scott Benner 57:46
Zack, your thyroid works. Okay. Yes. Are you pretty sure.

Nancy 57:53
We just haven't checked? It's good.

Scott Benner 57:55
Sorry. Pretty sure. Is your you said brother, right. Brother is he does he think you believe Nancy? That he's concerned about diabetes or anything like that?

Nancy 58:10
No, I don't believe so. There have been over the course of five years, maybe once or twice that he's exhibited some sort of symptom. And I checked his blood sugar and he was completely fine. Also, we've done trial net several years ago, and he didn't have any of the markers. So I think he's, he's not worried about it.

Scott Benner 58:44
Any anger, there's act that it's you and not him?

Zach 58:51
Well, not really. I mean, I got some benefit from it that he didn't, but like, yeah, no, I, I don't really think that he deserved it. I don't think either of us deserved. Yeah,

Scott Benner 59:09
I did that stuck with me. I didn't expect you were gonna say yes. That actually if you just said yes, I would have signaled to your mom that you needed psychiatric care. But I just, I just wanted to get the answer from you. i i have the bigger ideas that that it's not a right, exactly. And I tell you a secret. I'm hoping I'm hoping that the people listening can hear that it's not such a big deal to you and that you're okay. Yeah, you know what I mean? And so that's why I'm asking you questions like that. Not so that you're not so that you'll but but if you have some deep dark secret, like, I mean, probably tell somebody you don't I mean, if you can't tell your mom tell another professional something like that. They used to be when I was a kid, tell them other adult but I gotta be honest with you. I've met a lot of adults. I don't think I would do that. Tell a teacher but then every day I turn on the news. There's a teacher like to have had sex with a kid and I'm like, I don't know. Like, how do I know it's not one of them when I'm telling them? You know what I mean? So, yeah, that many teachers do that. I'm not saying that. I'm saying hello, qualified professional if you have any problems, doctor, something like that. All right, Zach, you promise? Yeah. I think Zack and I are both sarcasm each other into a hole. What do you think of that?

Nancy 1:00:26
I think it's true. Yeah.

Scott Benner 1:00:28
Where do you where do you get this sarcasm from? Zack, I don't even know if people can read it. Yours is so tight and quiet. But is it from? Is it from your mom or your dad?

Zach 1:00:39
Ah, I'd say from my brother. But that's not true. Because it can't. But it's probably from my dad's side.

Nancy 1:00:47
You think Nancy is definitely definitely

Scott Benner 1:00:50
hard to be married to a sarcastic person. And so yes or no.

Nancy 1:00:54
At times, yes.

Scott Benner 1:00:57
Do you ever wonder sometimes, like, why is he joking about everything?

Nancy 1:01:01
Oh, it's so annoying at times.

Scott Benner 1:01:07
My wife's like, this isn't funny. I was like, well to you, because it's happening to you. But to the rest of us. It's hilarious. So just like you're ganging up on me, I'm like, You're the one that dropped the food on your shirt. Like, I don't know what you want us to do? Should we just sit here and pretend it didn't happen? You know what I mean? It's like, that's what you gotta do? Sack you bust your parents balls? Or how are you with that stuff?

Zach 1:01:29
Um, no, I? If, well, what? In what scenarios? All of like,

Scott Benner 1:01:38
oh, I don't know. I've raised my children to be so free with themselves. Like, I mean, other times when kids don't say anything. That'd be great. Maybe I should have done that instead.

Zach 1:01:47
Not not? Well, most of the time. I don't say anything. You just buy? Sometimes. Like if they like get on my nerves like my dad, if he makes us a really, really, really, really bad joke. Or like, it it just sometimes, but not, not really not really.

Scott Benner 1:02:08
Do you know it took my wife two years to stop doing this thing. My kids would come up to her with a video and say Mom, check this out. And my wife's first question was Who is that? And my kids would go Mom, I don't know everybody on the internet. And that was always how it went. I think they were trying to like but she always assumed that she was being shown a video of somebody that they knew is literally took her like two years to stop asking. And they were unmerciful on her about it like just there were times where I would see the phone go in her face. And they'd be like, Mom, check this out. And she'd go Who is that? And Arden will take the phone away and say never mind. Like you're not allowed. You're not allowed to look at it now. Like you like you blow you're not allowed to have it. Are you that harsh to your arm or no? No, no, he's not. He's not harsh. Gotcha. No. Well, that's you keep being a good boy. Zack, you understand me? Zack, let me ask you another question. If Lucy their exact disappear. Oh, wait. We killed Oh, I get it back sorry. Know what happened? You okay?

Zach 1:03:24
Yeah, my phone has this time limit thing on my apps. And it's

Scott Benner 1:03:31
Nancy. Zack, let's talk about that for a second. They have a time limit on your apps. They're limiting your usage. Yeah. Tell her how you feel about that.

Zach 1:03:44
Okay, mom? Yeah. I have something to tell you. Okay. He told me to say this.

Scott Benner 1:03:55
No, I did. Just tell her how you feel. I'm not putting words.

Zach 1:04:00
Okay, so it's kind of annoying that when everyone listening because

Scott Benner 1:04:11
the app cut him off again. That's hilarious. Oh, my gosh. That's hilarious. I think we should leave him off now. He's being punished and we should get now Nancy, tell me all the things you hate about that kid. Go ahead.

Nancy 1:04:25
Oh, my goodness. That's all the stuff is trying to protect my kid.

Scott Benner 1:04:29
What are you tried to keep them from the porn? What do you do in Exactly? Oh, hours enough time.

Nancy 1:04:37
Right. I'm just trying to get them to do some homework and not be on zoom all the time.

Scott Benner 1:04:43
I see. Oh, God, I think Arden would burn the house down if I did that. Oh gosh. Yeah. Would that be great if she was chatting with some boy or something or a friend and her phone just shut off? Oh my gosh, she'd come in a room with a stick and hit me. I just have to

Nancy 1:04:59
go Do you Do you want me to? He's in the room here now see that? Yeah. Let me see.

Scott Benner 1:05:06
Zack This is Can he hear me? No. Can you hear me for the headphones? Zack put these headphones on while your mouse clicks she can't hear us now while she's fixing your phone. Can you hear me? Okay? Yeah, I can hear you. Listen to me. This is insulting. You have to do something about this. Alright. You seem. You seem like a reasonable kid. I don't think you're using your phone for harm. This needs to be fixed. You got to get out off. Okay. I'm going to try to help you when we get back on Okay.

Zach 1:05:39
Okay. All right. All right. Thank

Scott Benner 1:05:40
you for the heads up. Or you fell off. He didn't hear that part. Okay. Sorry about that. You're doing the right thing. You're a good mom. Stop him from using the phone. But what? What age are we going to let him use it for longer?

Nancy 1:05:59
How long is it coming soon? I'm sure. Yeah.

Scott Benner 1:06:02
Well, now at what time? Is your phone cut you off?

Nancy 1:06:06
Well, definitely, you know, he's still in middle school. So he might get some more freedom when high school comes like his brother. And we'll see definitely before college.

Zach 1:06:27
Alright, shall I continue?

Scott Benner 1:06:29
Zach, tell your mom Hi. This makes you feel good.

Zach 1:06:32
Okay, kind of annoys me that like, right when I'm online or like I'm doing something like say I was playing a game. It just cuts me off. At any time. Sometimes I don't even know when. But like, I it just cuts me off. Like say I was in a call like now. I I'm just in the middle of a sentence I get cut off. Then I need to ask for time. But then, whenever I asked for time, it's I have to do something first. Okay, I'll do the thing. And then I get I get a little bit more time.

Scott Benner 1:07:09
Okay, you're not so I'm trying to do your friends mock you on mercifully about this. They treat you like lesser than because this happens to sometimes. Zack, have you ever been bullied about this? No, no. I'm glad you have.

Nancy 1:07:23
Yes. He has way more freedom than a lot of his friends. So I don't even want to hear it. Do

Scott Benner 1:07:29
you feel like that's true, Zach? No, no. Okay. Do you think that your mom's trying to protect you? Or do you think she's being over protective?

Zach 1:07:38
Both? Well, yeah. Both?

Scott Benner 1:07:41
What would you do with more time?

Zach 1:07:44
What would I do with more time?

Scott Benner 1:07:46
If you have more on your phone? What would you do with it? Oh,

Zach 1:07:49
if I had more time on my phone I mean, I wouldn't really do much. I if I had an hour. If I was on a call. At least it wouldn't cut me off.

Scott Benner 1:08:04
So it's more about freedom. You wouldn't start doing more things or extra stuff. You just would have some more freedom.

Zach 1:08:09
I mean, not really. No. Yeah. It's just a little more freedom. Yeah.

Scott Benner 1:08:13
What apps are you on? Are you on Instagram?

Zach 1:08:16
No, I don't have any social media. You don't have to

Scott Benner 1:08:19
tick tock? No. Oh, Zack. Is it because you don't want it? You're not allowed. Not allowed. It's a pretty big trend on tick tock right now, Zack. Here is I think you would like it. Oh, no. Just saying. Anyway, I don't think I can tell you about it. But a lot of people seem to be dancing without undergarments at this point. So yeah, it's crazy, man. This is what you're missing.

Nancy 1:08:52
That's just what we need more of

Scott Benner 1:08:56
think. No, I have to be honest with you. I'm at the point. Now I'm at the age where I'm like, I like my kids are like scrolling and I'm like, does anyone wear a bra at this point? And I told her is like not right now. And I was like, what she goes it's a it's a massive trend right now. And I was like, Oh my God. Wow. Like what are we doing Zach? Right. We don't want to see we wouldn't you know, you know I'm saying?

Zach 1:09:20
Yeah, now Tik Tok is off the list. Yeah.

Scott Benner 1:09:24
At all. Is there an app you wish you had that? that you think would be reasonable for you to have?

Zach 1:09:32
I get these two confused, but which one is the one where it doesn't have videos, but like, you can, like message your friends? What's it like?

Scott Benner 1:09:42
Is that WhatsApp?

Zach 1:09:45
It's the one between Instagram or Snapchat?

Scott Benner 1:09:48
It's Snapchat. Yeah. Who wants that?

Zach 1:09:53
Yeah, just that I wouldn't want like tick tock or Instagram.

Scott Benner 1:09:56
Nancy. Why can't he have Snapchat?

Nancy 1:09:59
I don't know. Okay, I'm going to figure out why he can't.

Scott Benner 1:10:02
When you look when you look into it, or will you just come up with a reason why it's a no,

Nancy 1:10:06
no, I mean, sure, I would look into it if I feel like he could be safe or I could secure it somehow, then I would consider it.

Scott Benner 1:10:18
And Zach, you just want to like have streaks with your friends, right? Yeah, yeah, Nancy, they just want to listen. They just want to hold their phone up to their face, take a picture of their forehead and send it to each other and see how many days in a row they can do it. That is exactly what they

Nancy 1:10:31
do. Cool. Oh my gosh. That sounds like so much fun. I'm keeping him from.

Scott Benner 1:10:38
You're stopping him from having a full life. Nancy of Santa Fe as far ahead pictures to his other stupid friends so they can send their forehead pictures back. I see how you're ruining everything.

Nancy 1:10:49
We have allowed. Zach what's Oh, Deviant Art. He Zack is an artist. Okay. And so he is allowed to post his art on this. I don't. I guess it's social media, because you're sharing your art. But yeah.

Scott Benner 1:11:10
All right. Well, Zach, what do you do you draw or paint? Or what do you do?

Zach 1:11:16
Yeah, I do illustrations. I usually do. Only pencil. But sometimes I do. Pen and I'm getting into digital art.

Scott Benner 1:11:26
Wow. That's very cool. Maybe your mom can send me something. So I can say it. Would that be alright, pick out one. Cool. And I have one more question before I ask you the kind of closing question which is how did you break your arm? Why are you in a cast?

Zach 1:11:42
Oh, um, so I was playing tennis with my dad and one of his work friends when they pushed you down? Yes, my dad was extremely mean and like, because we lost he pushed me down. Unbelievable. Now, so what happened was, the person we were playing against was, uh, he hit the ball to me. And I was supposed to hit it with a backhand. If you know what that is. It's where you're using your left hand.

Scott Benner 1:12:12
Don't stop me, Zack. I understand what a backhand is. Go ahead. Go ahead. Okay. Okay.

Zach 1:12:15
So I was supposed to hit a backhand back with, but I am really good with my right arm. So I'd wanted to do a forehand. So I was backing up extremely fast. And I tripped on my feet. And I fell backwards onto my hands. And right when I got up it like my hand was dangling in a really bad position. And my mom, right when she saw it, she knew it was broken because she saw like, white on this skin. Or like,

Scott Benner 1:12:50
was pressing. Yes. Yeah. Fun times how that feels.

Zach 1:12:55
Yeah, I felt like I was about to pass out, like get hurt a lot.

Scott Benner 1:12:59
They see his blood sugar shoot up immediately.

Nancy 1:13:02
Yeah, he got pretty hot. Well, he got into the 180s, which is unusual for him. And you know, we immediately went to urgent care. And then we had to go to the hospital. But he ended up having to get pins in his wrist because of the the way it broke. So still in the healing process, but it was really only that day that we had issues with his blood sugar.

Scott Benner 1:13:32
I came back after that. Okay. Yeah. Well, I hope that heals well, for you, Nancy, I'm gonna ask you, is there anything that we haven't talked about that you wish we would have?

Nancy 1:13:41
I don't think so. We did. Okay.

Scott Benner 1:13:42
Yeah, exactly. Do you have a good time?

Zach 1:13:46
Yes. Excellent. Other than the time cutting off, but like, yeah,

Scott Benner 1:13:51
that was hilarious. You have no idea. The second time it happened. Zack, you were in the middle of sticking up for yourself. You were like, here's why. We're just gone. I was like, that's perfect. i The part of me toyed with ending the podcast right there. Like how great would it be? If you started complaining, and then the podcast just ended and it was over?

Zach 1:14:10
That'd be great. That's

Scott Benner 1:14:11
what I shouldn't be perfect. But I kept talking to you. No, well, no, I screwed up. It's my it's my mistake. All right. I really appreciate you guys coming on and doing this. I'm thrilled that you're doing so well. And it sounds like you know, you guys are really kicking butt. It's fantastic. Thank you. Congratulations, man.

Nancy 1:14:31
I definitely appreciate you and I think it's awesome how many people you're helping and just keep keep doing it.

Scott Benner 1:14:39
Thank you. I will I my secret. You said you don't know how I do it earlier. My secret is I just promise ads to companies then I take their money and then I am I absolutely have to make a podcast then afterwards. It's No, I don't mean it like that. I mean, it's that it's a responsibility is helpful. You know what I mean? Like if it right, if it was just random, or I put one up once in a while or, you know, even once a week, you could probably get away with being lazy about it. But when it's a job, it's it's kind of good. It keeps you moving. So right, because everybody has days, they don't want to do something, but I don't I don't get that opportunity. So, right. I appreciate it very much.

Nancy 1:15:22
Okay. All right. So I do have to ask you, and maybe the opposite is gonna be personal. Oh, no, no. Well, it's about the World Series. So I don't know if you want to. Who are you reading for?

Scott Benner 1:15:34
Well, I mean, I'm a Phillies fan. So I'm absolutely mortified that the the Braves are in the World Series. Terrible. And if only they would spontaneously combust is the only way I could be. So wow, have the Braves winning the World Series, which by the way, it looks like they're going to do

Nancy 1:15:55
that was a pretty good game last night. Well, for

Scott Benner 1:15:57
you if you're a Braves fan. It was if you're an Astros fan. I have to be honest, if I'm really breaking down this World Series, which people are going to hear about six months after it happened. I'm a Phillies fan. Lifelong. I don't like seeing that, that anybody else in the division do well besides us, obviously. It's very cool to watch Adam Duvall play because he has type one. And I still think the Astros cheated and I want them to lose. So okay, I'm happy to see them.

Nancy 1:16:30
That you're rooting for them to lose, but not the Braves to win. I see.

Scott Benner 1:16:34
Honestly, I'm just watching them because they're baseball games. I love baseball. And these are the last potentially seven games of the year. So yeah, you know, but it was cool to see Duvall hit that homerun. He's having a really like a hell of a season. So yeah. So while I ask you, Zack, before you go, does that do anything for you to watch someone with type one on television accomplishing something at a high level?

Zach 1:16:57
Um, I mean, I so I don't watch the baseball games a lot. Because I'm not like a big sports watcher.

Scott Benner 1:17:07
Using the describe baseball, go ahead. The baseball game but any game in sports? I I put that aside, like Do you get any bump from that at all? Like, oh, that I heard last night a guy hit a homerun in the World Series. He has type one does it? Because here's my theory, Nancy. I think it means a lot to parents. Because I think they want to point to it for their kids. Like Look, baby, you meanwhile, Adam Duvall is one of 3000 professional baseball players in the world. None of us can do what he's doing. It's an absolute, like, just a randomness. You don't I mean, that he has diabetes is really cool. But I think it's a thing, generally speaking that parents use, and I understand why like to kind of give them their kids a little bolster. I don't know if their parents care. I don't know if the kids care. Like,

Nancy 1:17:59
I, I agree with you, you know, last night or not that last night, but they were watching one of the division games, and I mentioned it to Zach. And he was like, and, you know, yeah, so I but I kind of feel like it maybe has to do with the age of the kid? I don't know or how far they are into diagnosis. I'm not really sure. Yeah,

Scott Benner 1:18:22
I'm sure it's listen, I'm sure. For some people. It's really meaningful. I'm not I'm not saying that. I'm just saying that overwhelmingly online. You know, you see, parents are always asking, like, can you get on an athlete that has diabetes? Can you get on a famous person that has diabetes? Can I'm always like, Oh, no, like I rather I like talking to regular people better? Honestly, like sometimes. I mean, there's people I've jived with in the past. Sam folds been on a couple of times, and he's a former MLB player. And I just like Sam, I don't think it matters to me that he played baseball. And like, there's everybody's like, can you get them to all on the podcast? Like I be people cannot possibly ask me one more time about that. And there's part of me that's like, I could but I'm just gonna become like a baseball fan and talk to him about baseball for an hour. And you're gonna and you'll be surprised. I bet you you say to him, like, hey, how do you manage your diabetes? You'll be like, I just want my pump. It's not going to be some grand secret that he has that the rest of you don't have, you know, right. So, all right. Well, I appreciate you saying that. And I'm thank you for making me come out against the Braves on in a recording. It's fine. If I'm an adult, Zach, to be honest with you. I don't give a crap who wins the World Series? I just want to watch baseball, you know?

Zach 1:19:38
Yeah, I don't either. But I'll watch it.

Scott Benner 1:19:42
Yeah, I actually to be honest. Most of my life, like that's not how stuff occurs to me. You know, if I sit and watch a football game, you know, and the Eagles win. I'm like, Oh, the Eagles won. And if the Eagles lose, I go oh, the Eagles lost. I don't like it. I don't understand when sports that Other people are playing impacts you so greatly that you're upset by it or, like I was excited when the Eagles won the Super Bowl for like an hour. And then I was an adult, and then it was over. I was like, oh, yeah, well, that was fun. Anyway,

Nancy 1:20:13
yeah. I'm definitely getting into the series because we're from Atlanta, and I want to support the home team. But of course, everybody in this house is, Mom, why are you getting so into this game? You know, that sort of thing? But I'm usually I don't have to watch every game or anything like that.

Scott Benner 1:20:37
Oh, well, I'll let you make a prediction as a non like, God, who's gonna win the series and how many games to what?

Nancy 1:20:44
Of course, the Braves? Maybe four to one.

Scott Benner 1:20:51
Let's say it's not gonna happen.

Nancy 1:20:54
I'll cross my fingers

Scott Benner 1:20:55
World Series between two good teams. It'll least go six games. Really? Yep. And and 100%. This could. I mean, this could go seven. It really could if you know, I think you just got you got stuck last night where the Braves starting pitcher Charlie Morton came out and just was on fire and he shut the he shot the Astros down. The Braves put up a couple of points and you just it swings the wrong way. You got really good took a big hit because Charlie Morton broke his leg last night.

Nancy 1:21:27
I know, I saw that he was able to pitch like, I don't know.

Scott Benner 1:21:32
Couple more. And then he realized Yeah, terrible. Yeah. Pretty amazing work. So and he's an old guy. So he's gonna need every day to come back next year. Alright guys, thank you very much for doing this. Hold on one second. Okay. Okay.

Well, let me start off by thanking Zack and Nancy for coming on the program and sharing their story. I'd also like to thank Dexcom, makers of the Dexcom G six, and the Hello Dexcom program which you may be eligible for eligible anyway, you might be able to get it dexcom.com forward slash juice box, there's only one way to find out, hit the link. And to see if you're eligible for that free 30 day trial the Omni pod dash or to inquire about Omni pods other products like on the pod five, go to Omni pod.com forward slash juice box fill out the information, hit hit enter, send it over them, they'll call you back. You get started on the pod.com forward slash juice box.

If you're looking for my diabetes Pro Tip series, it begins at episode 210 In your podcast player, or you can find out more about it at diabetes pro tip.com juicebox podcast.com. We're in the featured section of the private Facebook group Juicebox Podcast type one diabetes. Perhaps you're looking for the defining diabetes series, The defining thyroid series variable series, how we eat after dark. Hmm, there's so many to choose from juicebox podcast.com Or just dig around that podcast player and find yourself a an episode and dig in. might love it. I use Digg twice, but I don't feel like re recording this. So that's how this is gonna stay. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.

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