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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
We are all together again, friends for the next episode of The juicebox podcast.

Janelle is the mother of a child with type one diabetes, who says that this podcast saved her daughter, her son, Lee, and her marriage. This is her story. Nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan. If you are the caregiver of someone with type one diabetes or have type one yourself, please go to T 1d exchange.org/juicebox and complete the survey. This should take you about 10 minutes, and will really help type one diabetes research. You can help right from your house at t1 dxchange.org/juicebox. Don't forget to save 40% off of your entire order at cozy earth.com. All you have to do is use the offer code juicebox at checkout. That's juicebox at checkout to save 40% at cozy earth.com. When you place your first order for AG, one, with my link, you'll get five free travel packs and a free year supply of vitamin D drink. AG, one.com/juicebox. When or if you need something that is represented by one of the sponsors, it would help the podcast immensely if you would use my links to look into it or to make a purchase.

Arden started using a contour meter because of its accuracy, but she continues to use it because it's durable and trustworthy. If you have diabetes, you want the contour next gen blood glucose meter. There's already so many decisions. Let me take this one off your plate. Contour, next.com/juicebox this episode of The juicebox podcast is sponsored by Eversense. The Eversense CGM is more convenient, requiring only one sensor every six months. It offers more flexibility with its easy on, easy off, smart transmitter, and allows you to take a break when needed. Ever since cgm.com/juicebox your kids mean everything to you, and you do anything for them, especially if they're at risk. So when it comes to type one diabetes screen, it like you mean it. Because if even just one person in your family has type one, your child is up to 15 times more likely to get it, but just one blood test can help you spot it early, so don't wait. Talk to your doctor about screening tap now or visit screenfortypeone.com to get more info and screen it like you mean it.

Janelle 2:42
Hi. My name is Janelle, and I'm the mom of a type one.

Scott Benner 2:45
Janelle,

Unknown Speaker 2:46
how old are you? 3939

Scott Benner 2:50
seems like a reasonable age. Let's see. They all seem like reasonable ages. Let's see. What else How old are those kids?

Janelle 2:56
So my type one, she's the baby. She's going to be 10 next month, and then I have a 14 year old and a 16 year old.

Scott Benner 3:04
Wow. And you were 39 and how old was your 10 year old when they were diagnosed? Eight, girl or boy?

Unknown Speaker 3:11
Girl, all right. Tell

Scott Benner 3:14
me about the diagnosis. How did you figure it out?

Janelle 3:17
Um, so it was a tell, you know, normal story, like everybody else, she did, go into deep Ka and that was pretty scary, although I'm pretty sure she had diabetes for a year leading leading up to diagnosis. So we got covid in January of 2022, and then about two months later, she started randomly vomiting at night, and it was like the worst vomit we had ever encountered. I mean, we have three kids, we used to vomit, and it just smelled so foul, like I don't even know how to explain it. We would like wrap up the blankets and throw them outside in the middle of the night, and then the next morning go and hose them off before we could even put them

Scott Benner 4:01
in the washer. The microphones touching your clothes. But I didn't want to stop you while you were saying that. Oh my god. I don't think that anybody's ever jumped into the podcast the way you just did. Like, damn it. Forget all the pleasantries. Worst vomit I ever spelled my entire life. I

Janelle 4:20
mean, it was so bad, I just don't even know how to describe it. We were like, What is going on? And she would vomit at one or 2am and then she would be perfectly fine and go back to sleep. And we were just like, what? Like, what's going on,

Scott Benner 4:34
you know, no indication of illness after the vomit, before, after,

Janelle 4:38
none. So that was, you know, that was the first symptom, and literally, two months after we had covid. So it went on for about two or three months, randomly, no rhyme or rhythm to it, when she would throw up, maybe once a month, maybe twice. Sadly, my at the time, my two daughters shared a room in a bunk bed, and she was on the top bunk. So my daughter in the bottom would get to vomit a lot. That was really hard.

Scott Benner 5:06
Your eight year old was randomly vomiting a couple of times every other week or so,

Janelle 5:12
um, like once or twice a month. Yeah.

Scott Benner 5:15
Okay, okay. And, and other than that, did you notice anything, even in, like, hindsight. Do you notice at that

Janelle 5:22
time? No at that time, no. But I did take her in for the vomiting, because my oldest daughter had what was called abdominal migraines that would cause her to vomit, which was like a year before, before she started her, you know, cycle. So I'm like, okay, maybe that's what's going on. But then it was, like, she's eight. My other daughter was, like, 11, you know, there's, like, a big age difference. So I did take her into the doctor and, you know, told them what was going on. And they were like, well, just track her diet. You know, maybe it could be that, we're not sure, just track her diet. So I started, you know, writing down what she was eating a little bit. And then I kind of concluded, like, Oh, she's vomiting when she has cereal that day, which we don't really buy cereal or eat cereal. The only cereal we would buy, used to buy was Cheerios, and she random. I mean, she rarely ate it. We just, she wasn't a big fan, so we rarely ate it. And I was like, Oh, she's allergic to milk. So I didn't even, you know, diabetes wasn't even on the, you know, spectrum of spots at all. It was like, Oh, she's allergic to dairy. And so we kind of went with that for a little bit. And then towards so that, you know, started in February, March, towards October, she just started getting really tired. I mean, like, just come home from school, lay on the couch, watch TV zombie. And that was not typical for her. She's like, my, you know, third child, so she's very outgoing, she's very active, and then she was just super grumpy. I mean, I couldn't I remember her coming home from school and having math homework, and one time she like, yelled at me, and she's like, I just can't remember. And I was like, What is going on with her? Like, she's having severe behavioral issues, you know? So then they started going down rabbit holes of that, trying to figure out, like, what is it the transition to third grade? Like, is it, you know, I know it's a lot more homework. Is this what's, you know, causing her to act this way?

Scott Benner 7:23
You're making me wonder how many people were burned at the stake as witches who were just going into DKA, because, you know what I mean, like that, yeah, yeah, the confusion, and then the variability in how you are, and then the malaise at all, like it just you're scared during that time, trying to figure it out, or is it not striking you like it might be a bigger issue,

Janelle 7:47
so it's not striking me again. She's my third child. We have, like, No, my kids have rarely go to the doctor. I mean, they only go if they're severely sick, and that's very rare, you know, so at the time, I'm not thinking anything severe. I do take her in for, like, her annual checkup around that time, and they did tell me she had, I guess, protein in her urine, like, pass it off as no big deal. Oh, bring her in tomorrow. She probably just didn't clean herself good enough when she wiped so I brought her in, like, the next day they retested, and they were like, Oh, it's fine again. No red flag for me, because the doctor's telling me it's fine. I don't even go home and Google it. I think everything is perfectly okay. Halloween rules around. She is severely sick. I mean, she has a double ear infection. She's just miserable. She misses Halloween. And I'm like, What is you know, again, I'm like, Why does she keep getting sick? This is where I have, like, a lot of extreme mom guilt, because I just bypassed them. Like, oh, she's a kid. She'll she'll be fine. Those

Scott Benner 8:55
things, they'll bounce back. Hey, can I say something before you move forward? Hold on to your mom guilt for a second. Yeah, because we're gonna get too far past this if I don't do this. Abdominal migraines are a type of migraine that primarily affects the stomach rather than the head. They are most common in children, especially those between ages of two and 10, but they can also occur in adults. The exact cause of abdominal migraines is not well understood, but they are believed to be related to the same factors that trigger classic migraines, such as changes in brain chemistry and genetics. Like, I thought this was, like a colloquial name for something, but it's literally is a headache that you feel in your stomach. Yes,

Janelle 9:31
I had no daughter doesn't have it anymore. It was literally just like the year leading up to her starting her cycle, and it was on a monthly basis, like in tune with her cycle. And now she's 16, and she has extremely painful and bad period. So I don't know if that was like a signal that that was gonna go that way for

Scott Benner 9:52
her. Is she been looked at for PCOS?

Janelle 9:55
No, but that's we're actually just I was just talking to her about it the other day. She bleeding into another subject. She kind of has, like, medical trauma since my youngest daughter's diagnosis, so she really doesn't want to go to the doctor. And I'm like, we need to go. You're down for two days. Like, this is not okay, you

Scott Benner 10:13
know, yeah, especially with the now you're seeing the autoimmune in the family, so PCOS is a reasonable concern. Yes, okay, I'm so sorry. Let's get back to your horrible guilt. Go ahead. Yeah. Did you know if just one person in your family has type one diabetes, you're up to 15 times more likely to get it too. So screen it like you mean it one blood test can spot type one diabetes early. Tap now, talk to a doctor or visit screened for type one.com. For more info. The contour next gen blood glucose meter is sponsoring this episode of The juicebox podcast, and it's entirely possible that it is less expensive in cash than you're paying right now for your meter through your insurance company. That's right. If you go to my link, contour next.com/juicebox you're going to find links to Walmart, Amazon, Walgreens, CVS, Rite, aid, Kroger and Meyer. You could be paying more right now through your insurance for your test strips in meter than you would pay through my link for the contour next gen and contour next test strips in cash. What am I saying? My link may be cheaper out of your pocket than you're paying right now, even with your insurance, and I don't know what meter you have right now. I can't say that, but what I can say for sure is that the contour next gen meter is accurate. It is reliable, and it is the meter that we've been using for years. Contour next.com/juice box. And if you already have a contour meter and you're buying test strips, doing so through the juicebox podcast link will help to support the show.

Janelle 11:56
So I you know Christmas passes by my daughter, actually, my older daughter returned, 15 she had a quinceanera youngest daughter, again, was just in a horrible mood, biting me. I'm not gonna wear a dress, you know, all these things. And I just was like, I'm just having so much trouble with this child. Like the mom and daughter, like, dynamic is just not going well, you know, she's just angry all the time. And then January rolls around, and I made a comment to my husband. I said, you know, she looks like she's lost a lot of weight. And I just, I don't know, I just feel like something's off. And he, like, kind of looked at her, and he was like, hey, you know? Well, she grew, she grew, she grew. She thinned out. All of our kids did that. We're tall people, so you know? He was like, she's getting taller. She thinks. I'm like, Okay. And then I even had like, a random friend that hadn't seen her in a few months saw her, and he did like a double take, and he's like, Arielle, and then he's like, wow, whoa. She's so thin and and even in that moment, I just was like, Oh yeah, she, you know, she got taller, but after diagnosis, I remember him being like, Oh, I'm so sorry. Like, I, like, was so shocked to see her, and then now, like, to know something was wrong with her, you know, like, he's like, I feel so bad. And I was like, No, it's, it's not a big deal. But so she still was throwing up, right? And she still, she would throw up, also randomly at school during lunch recess, and then they would send her home, and I would be like, well, she's fine. And they were like, well, she keeps throwing up. And I'm like, Well, I'm working with the doctor. We're tracking her food. We think she might have, you know, dominant migraines, which is not really getting anywhere. They she came home on a Monday, threw up after lunch recess, and normally, when she after she threw up, she'd, you know, be down for a few hours, and then she'd be fine. Well, she came home and she just looked like death, like I couldn't be honest, like I looked at her and I was like, You're sick. So she got in my bed. She slept in my bed that night. She threw up all night. I mean, I could not even get water down, nothing. So the next day, usually, after 24 hours, you know, they when your kids, like, have a, you know, viral or stomach bug, they start to perk up a little bit. And she didn't perk up. I mean, she was, like, sliding down a hill, like, getting worse. And I just that was, like, the major red flag, because, like, something's wrong. So I called the pediatrician, and I was like, hey, you know, I need to speak with a nurse. And they called me back, and I was like, she's been vomiting for 24 hours, like she can't even keep water down. I was like, so if anything, I know, she's 100% dehydrated. They were like, Oh, we can see her tomorrow. And I was like, Okay, make the appointment. So I made the appointment, hung up the phone, I got in the bed with her, and I was just like, No, this is no. I need to take her in. So I immediately took her to the ER, just something, I guess, like the mom in me was just like, No, she's not gonna make it till tomorrow. Like this. She's Janelle.

Scott Benner 14:56
Tell me right there. Did you think she was gonna die if you didn't take her for medical care?

Janelle 14:59
I didn't think she was gonna die, but just something was telling me that it just wasn't normal. I had three kids, and she just wasn't acting normal. She kept telling me her stomach, her whole stomach hurt. So I was thinking, like, appendicitis. But she wasn't like, oh, it's to the side. She was like, my whole stomach hurt,

Scott Benner 15:18
okay, you know, are you a big hand talker. What's happening with that microphone? Put your hands down at your sides while you're talking. Yeah, I have a question, because I heard something that I'm wondering if I got right or not. What's your background? Are you Mexican? I am not my husband. Is your husband is I heard the humble brag about the height, and I thought this could be a Mexican thing, and so was I close to right. Come on, help me.

Janelle 15:47
All my kids are super tall. It's not a humble bag. Actually hated being tall growing up. Really. How

Unknown Speaker 15:52
tall are you?

Janelle 15:54
I'm 510, 510,

Scott Benner 15:56
no kidding. Good for you. Tell me a second. Why did you not like being tall growing up?

Janelle 16:02
Um, well, I went to, I grew up in a really small town, and went to a really small school, you know, K through eight, and I was, like, the only tall kid. And so just, you know, I didn't fit in. I wasn't normal. I guess I find

Scott Benner 16:15
Tall women very attractive. I don't know why. I always feel bad when I see them, kind of like curling their shoulders over, kind of hiding their height and stuff like that. But it's just people are looking at you. Is that the issue?

Janelle 16:27
Oh, yeah. And I think just awkwardly as a teen, you know, or pre teen, you just, like, I had two best friends growing up, and they were the same height and they shared all the same clothes, and, like, I couldn't do that with them. All

Scott Benner 16:39
the stuff is different. Yeah, I see okay, all right, I'm sorry, emergency room go ahead. Yes, they

Janelle 16:46
take her into the emergency room right before I take her in, when I'm like, contemplating take her in, I start to Google all the symptoms, and I, you know, I forgot to say she was going to sleep with a water bottle leading up to this. And I just thought, yay, she's drinking more water. Like, had no clue that she was, like, so thirsty, you know, because and then she was peeing a lot excessively, too. And she kept telling me she was so I actually had first went to like, Oh, do you have a UTI? And she's like, No, because it doesn't. I was like, does it hurt when you go pee? No, no, no, you know. So I just kept finding excuses for, you know, all the symptoms. And actually, two weeks before the ER, she had bloodshot eye, really bad, and she was like, it really hurts. And I again, I look at it, and I'm like, Well, someone just had pink eye. Her teacher had just had pink eye, maybe a pink eye. So I had even, like, taken a picture of it and texted it to my friend, like, do you think this is Pink Guy? She's like, No. And again, I'm like, Oh, you'll be fine. Go to school. You don't have pink eye. You just, you'll be fine. And it, you know, it went away. But, like, those were all super strong signs that I just totally passed off. But I had no education, no like, the doctor never told me, like, oh, well, maybe she had this. So look out for, you know, her drinking a lot and urinating a lot on losing weight. Like nobody said anything. So I googled all these things right before I took her in, when I had the epiphany, like, I need to take her in. And it was like, diabetes. And I was like, huh, diabetes? What like? So I take her into the ER, and I'm like, I think she has diabetes. She lost, you know, 10 pounds in a month, and she is drinking a lot and peeing a lot, and she hasn't stopped vomiting in 24 hours. And they poked her finger, and it was like, close to 500 we were like in a little tent because they still have, like, a covid tent outside the hospital. I don't know why we're 20. It was 2023 but

Scott Benner 18:47
I'm stunned that the blood sugar was only 500 honestly, he's

Janelle 18:51
saying, but we don't. We're not like soda drinkers. We don't, you know. And she also hadn't ate anything, you know, eight or anything in 24 hours. But yeah, I'm also bedafled How it wasn't like, super high, because I hear all the diagnosis stories and, like, their blood sugars are like, 600 700 and this had been going on for literally a year. So I was, I really think, for a whole year she was honeymooning, and that saved her. They immediately Gail DKA and about like, three nurses came running. They put her in a wheelchair, they took her straight to a room. And my son has had a million injuries. We've been to the ER, for you know, sports injuries. And he I've never been attended to that fast. And it was in that moment that I knew that, like it was serious. Yeah,

Scott Benner 19:39
when they don't make you sit there for three hours and stare at the wall, yeah, oh my gosh.

Janelle 19:44
So they got her to the room, it was, is really surreal. You know, I was by myself with her. She's asking me, do I have cancer? Am I dying? And I'm like, I can't even answer the question, because I don't even know what's going on. You know, I don't even know what diabetes. These is, I, I have one recollection of diabetes, and that was, you know, growing up in a small town, and a an older girl had died in her sleep, and it just went around the school, like, yeah, she had diabetes. So, like, that's the one thing that I could cling to as she's being diagnosed. And that was super hard, because I had no like other education

Scott Benner 20:22
Janelle, I just, I just got the chills when, when she asked if she had cancer, if she was going to die, because it made me feel like for all this time, because tell people again, from the first time she threw up until that day, how long had it been, one year? Oh, sweetie. Yeah. I just kept thinking, I wonder how long your daughter was wondering how what was wrong with her, because

Janelle 20:46
she never said anything. And there was also another thing that I find really interesting. About three months before she was diagnosed, she stopped eating rice, and she loved rice again. My husband's Hispanic, so, you know, there's a lot of Mexican rice. She refused to eat rice, and I couldn't understand it. It was like, You love Rice, but I think it was making her feel so sick that her body knew it, and she refuses to eat rice to this day.

Scott Benner 21:11
Have you in hindsight, have you talked to her and asked her why she didn't maybe I can't believe I'm gonna say this like this, but why she didn't like advocate for herself a little bit.

Janelle 21:21
I think she didn't know. I honestly think she was eight. I don't think she knew why she was not feeling well, or even correlated that she wasn't feeling well. I don't think she put it together. And I think because she was honeymooning, she would, you know, have really good time, and she would feel better, and then she would feel sick again. So I just don't think she even realized it wasn't normal. And I think at some point, you know, she, I mean, her a 1c when diagnosed, she was 13.7 so I think that she was learning, had her body had learned to function on those, you know, 300 blood sugar sugars.

Scott Benner 22:00
I bring this up to maybe, to try to relieve you a little bit of this guilt, right? Because, like, it's such a human thing. We have a very short memory about stuff like this, you know what I mean, and that that's good. It's for survival reasons. You don't sit around worrying all the time if you're going to get sick again. And so if she didn't feel well, she's tough kids. She fights through it, then she feels better. It would not be common for you to sit there and think, Oh, I wonder when this is going to happen again, even when it's happening over and over again. I just find that that's kind of that hopeful nature of human beings, you know what I mean? And yeah, and so I get it, and she's young, and she doesn't know enough to put two and two together and and worry, and you had found reasons for things that you saw that seemed, you know, like they answered questions. And, you know, the, the only thing I would say is, like, the vomiting for that long,

Janelle 22:51
yeah, and it was just so sporadic, though, like, I like one time it would just be one once that month, so it wasn't, and I didn't dawn on me until about October, when i i plugged I Google searched in my text messages, like puking, and I realized, like, how much she had been puking. Because I would text my friend like, oh my god, Ariel was puking last night. We're all gonna get sick, you know, and then no one else got sick. We never, nobody else ever got sick. And I had told the doctor that, and I had taken her to the doctor, and I just, I go back to day one, you know, two months after the bottom meeting started, why did the doctor not prick her finger? Why, when she went to her routine checkup, did the doctor not they picked her finger to check her iron, but they never checked her sugars. And

Scott Benner 23:39
then, and she starts getting other infections, with the ear infections too, and everything. So I'm going to use a word here. I don't mean this word, but I'm just, I'm tired today. I can't come up with a better synonym. But if you look back on how you handled it, where'd you go wrong? What? What? Let it go like? What's the thing you you wish you could have you could take back now, is it listening to the doctor?

Janelle 24:04
No, because the doctor didn't give me any solid advice. It would have been, I think, Googling her symptoms, just not bypassing again. I feel like if she was the first child, I would have been more attuned to what was going on, but because I had, at the time, you know, 14 year old and, or, sorry, 13 and 15 year old. I'm, like, I'm a seasoned mom. Like, they're just, it's a normal like, I just found excuses for everything. So I think just really not bypassing what, like, how she was feeling, advocating more, I guess, to the doctor I in my in, like, when I look back and like, I took her to the doctor. Why didn't they do this? Why didn't they do that? You know? And I think they see so many healthy kids that they just think it's a minor illness,

Scott Benner 24:49
right? Well, yeah, Janelle, you know, I think you're right. I put this into vision. Ai, I said, what do these symptoms point to? Thirsty, vomiting, lethargy, weight loss, vision. Says the symptoms you've described, thorough vomiting, lethargy and weight loss can be concerning and may be indicated indicate several possible health issues, including, but not limited to diabetes related conditions. In this in the context of type one diabetes, these symptoms could suggest a few critical scenarios. Diabetic Ketoacidosis, it describes it hyperglycemia, it describes it infection or illness. I think, do you think if you would have saw that, what would you have done? How many times have you thought it's time to change my CGM, I just changed it. And then you look and realize, my God, it's been 14 days already, a week, week and a half, feels like I just did this. Well, you'll never feel like that with the Eversense CGM, because Eversense is the only long term CGM with six months of real time glucose readings, giving you more convenience, confidence and flexibility. So if you're one of those people who has that thought that I just did this, didn't I why? Well, might have to do this again right now. If you don't like that feeling, give Eversense a try, because with Eversense, you'll replace the sensor just once every six months via a simple in office. Visit Eversense, cgm.com/juicebox, to learn more and get started. Today. Would you like to take a break? Take a shower? You can with Eversense without wasting a sensor. Don't want anybody to know. For your big day, take it off, no one has to know. Have your sensors been failing before 10 or 14 days? That won't happen with ever since? Have you ever had a sensor get torn off while you're pulling off your shirt? That won't happen with ever since? So no sensor to get knocked off. It's as discreet as you want it to be. It's incredibly accurate, and you only have to change it once every six months. Ever since cgm.com/juicebox,

Janelle 26:51
I would have took her immediately into the doctor and been like, I think she has this. I mean, I know about this advocacy. I I didn't mention this, but my son does have sensory processing disorder, and I advocated for him when he was a year old, because I knew something was off.

Unknown Speaker 27:07
Okay, he's your 14

Janelle 27:07
year old, yes, okay, yes. And he's very it's like a spectrum, like autism, and he's very low on the sensory spectrum, but he does have it, and he does, you know, have eating sensory issues. But as he's gotten older, it's gotten a lot easier to manage. So again, I pushed that when he was really young, because I saw the signs and the symptoms. But I think with her, just the chaos of life at the time, having two teenagers, my son played travel baseball. My daughter does ballet. You know, Arielle does horseback riding. I work full time. My husband has his own business. I just think you never, I guess I just after so many years of never having a major issue with any of my kids, as far as illness in my head, they were all healthy,

Scott Benner 27:56
and this was going, you see that hopefuls, those seasons of hope were happening for you as well. Yeah, yeah. You're like, Oh, she's vomiting. That's crazy, but she's good now. And then you get elevated again, and you kind of forget about it and and then, if it happens, spread out enough, maybe you just don't put the whole thing together. That's really sad.

Janelle 28:15
And the thirsty and the weight loss didn't happen until about, like, six months into the vomiting and the weight loss didn't happen until right before, you know, DKA, so it was just like, kind of on. The symptoms were piling up slowly. It wasn't like they all came out one, yeah,

Scott Benner 28:32
oh, it's really so let's have listen. You started off by saying it's a story like everybody else's, but then you told a story I don't think I've ever heard before. So geez, that's something. Are you I have another

Janelle 28:42
interesting piece too, which I don't I've tried to do the research to see if it's related, and I can't really find a link. But she was born two weeks early, and she was a little over eight pounds, and I remember getting really mad when she was born because they kept poking her foot. And I finally asked them why they were poking her foot, and they said, Well, we're testing her blood sugar because she's a big baby for being two weeks early. And I'm like, she's like, eight pounds, six ounces. Like, that's not really a big baby in my head, but I'm like, she's my third baby, and so of course, she's going to be a little bigger. They never told me if she had high blood sugar. But before we were going to, before I was going to come on here, I got her hospital records because I was just curious, you know, of all the details about when I took her into the ER, and of course, that is the same hospital where she was born, and she did have high blood sugars, and nobody ever said anything. And also when she was diagnosed, we live in a not a really big town. I mean, it's kind of big, but they sent her a children's hospital, which is an hour away, so she had to go by ambulance there. They tested her for the antibodies, and she tested for all. Five antibodies. So I just question if she had this even longer and we just had no clue, or she had no symptoms, or is it possible to have like, such a slow onset with young children? You know about

Scott Benner 30:14
that? Well, I just, I'm like, I'm all in on AI now. So are premature babies that are larger, more prone to type one later in life, the relationship between birth weight, prematurity and the development of type one diabetes later in life is the topic of ongoing research, and the findings are not entirely conclusive. However, several studies have explored various aspects of this relationship prematurity and type one Some research suggests that premature birth may be associated in increased risk of developing autoimmune diseases, including type one. The theory is that the immune system of premature infants might develop differently, potentially influencing autoimmune responses later in life. That crazy.

Janelle 30:56
Yeah, it is. And she wasn't considered preterm because she was, you know, close enough 38 weeks, yeah, yeah. But I just found it odd, yeah, even

Scott Benner 31:07
though the birth weight is not huge at that time, I guess the charts told them check her blood sugar, yeah.

Janelle 31:13
So when I pulled her files, they have like, this hand chart where they like, plotted it like a graph, and it was just a tiny bit above for the weeks. So it was like, check her blood sugar, and they never told me it was high. There was no information. Did it say how high it was when they checked? I don't have it off the top of my head. It's in my little files right here. But and also it when I looked, it wasn't, it wasn't the values that we use. So I was, I don't, I didn't have time to research, like, what, how that correlates? I don't know if they're using a different value system. Sorry, I'm

Scott Benner 31:46
not. Where was the hospital?

Janelle 31:49
It was here in California, but it said, like, 88 or something. But it said, Hi, I'm not. I could be wrong on the exact number, but it it showed, like, two times being normal and two times being high,

Scott Benner 32:03
but not enough for them to say something to you,

Janelle 32:06
I guess. I guess so. I mean, yeah, they never said anything. I mean, they didn't even tell me why they were poking her until I was like, Why do you keep poking her foot? This is my third baby. You've never poked my baby's foot. You know, even

Scott Benner 32:17
That's strange, though, because if it was in minimals, it would be 4.7 not 8888

Janelle 32:23
is well. And then I did read, so I got the hospital records, like a month ago, and I was like, digging into them. And I did it might, I may be wrong on the number, but I did read that for newborns, the sugar level is different. Ooh,

Scott Benner 32:35
okay. Oh, that makes sense. Then Okay, so I'm not sure of the exact you know. So yeah, high for what they expected, then yes, two hours old, normal level is just under two millimoles and more risk adult levels three or two days, within two to three days, and babies who need treatment for low blood glucose are at risk for low blood glucose. Low, yeah,

Janelle 32:59
when I Googled it, it just like, had a lot of information about low, but not high.

Scott Benner 33:03
Yeah, okay, all right. I don't know that we're gonna figure that out now, but that's super interesting. I appreciate you bringing it up. Yeah, all the people are listening now are like, were our kids premature by how much I wonder if they Yeah, that's something. It's

Janelle 33:16
just interesting that, like, again, I had no clue. But then when I pulled the records, it showed high. And I'm like, that's just odd to

Scott Benner 33:23
me. Well, apparently, not, apparently there's ongoing research about that. Yeah, so Okay, God, we're a half hour in. Why did you want to come on the podcast?

Janelle 33:33
So I love the podcast I listen all the time. Has just really helped me, one manage the emotions in the first couple months, there's just something about hearing other people's story and being able to you know, validate your story and make you feel you know, not alone, and then also for both aspects you know, and then also just their learning tools. So when she was diagnosed again, her a 1c, was, you know, close to 14, and immediately went on. MDI went home with a Dexcom, will went home with a Dexcom, but not on her. So we put it on, like three days later, yeah, and then she was MDI for three months, and got her her ANC was not coming down that fast. And again, they don't, they, you know, they don't tell you that they're bringing her down slowly. So that was a little frustrating for me, like, Why isn't this working? But after three months, got the OmniPod, I think so. I was introduced to you through a friend whose daughter had was diagnosed about a year before my daughter, but I had no clue, because we had lost contact during covid, and then somebody had told me on the way home from the hospital, well, you know, so and so's daughter as type one. And I'm like, What? No, that's like, my really good friend. That's not possible. And so I spoke with her on the way to the on the way home from the hospital, and our you know, diagnosis stories were a lot, like, super similar. And she was like, Hey, do you, you know, use Facebook? And I was like, yeah. A little bit here and there. She's like, Okay, I'm going to add you to this group. So since day one, she added me to, you know, your Facebook group, and I would, you know, follow along. But it wasn't until about like, two months after she was diagnosed that I actually started listening to the podcast, and then I started figuring out, like, oh, I can put in this work. I can do this, I can do that. And I got her a 1c down from, you know, the 13 on MDI to, um, 5.90

Scott Benner 35:31
wow. You know, that's amazing. Good for you. So there's, yeah, Jesus, that's, I'm stunned by a couple of things, but one that the hospital or your endo was comfortable with a 13, A, 1c, they weren't pushing harder. So

Janelle 35:47
it's a learning, teaching hospital. And I just, I don't you know, everything that they say, everything you guys talk about on the podcast, is super valid. There was just no real education. You know, you're, you're in this state of shock when you're diagnosed and and they, you know, give you this the day you're going to leave. They run you through this like eight hour course of how you're going to care for this child. And you haven't slept in three days, you know. And nobody said anything. Nobody said, Really, what? They gave me the ranges, but nobody said, Oh, she's we're bringing her down slowly, like she's going to be high for a while. And we actually had a planned trip to Disneyland the week after she was diagnosed, and I had told the doctor we can't go to Disneyland, you know, like I can't do this. Like I am totally freaking out. I don't I don't know how we're going to manage this. And she was like, oh, no, you have to go to Disneyland. She's like, you cannot let her so I will say I'm really happy with the doctor, because she was like, you cannot let her think that her life is going to be different because of diabetes. You cannot take away Disneyland. And I was like,

Scott Benner 36:58
what could you people say something that might help me? Yes,

Janelle 37:01
exactly. So we go to Disneyland. And now looking back, it was a miserable time. She was miserable. I mean, all the walking. But now looking back, she was still in the 200 and nobody told us like she's going to be tired. She's going to, you know, there was just this lack of information, and I don't know if it's because they don't want to overwhelm you, or there's just still, you know, a problem in the in the teaching Well, Janelle,

Scott Benner 37:29
I have my opinions. I think you know them as you're listening. So I think that they don't want to overwhelm you is the answer that doctors, who do know what they're talking about, give to stick up for everybody else when I think what's happening is when people have experiences like yours, I'm not saying everybody, and there are plenty of doctors who know what they're doing, and they're good at telling people how to manage things, and they're great support systems with good knowledge, etc. But for the ones who aren't, it's just a banal show of information. Don't let diabetes stop you. Great, but thanks. Like, you know what I mean? Like, like, yeah, so I'm gonna go to Disney. I'm gonna drag her ass out in the heat with high blood sugars, where she's probably got muscle cramping. She feels crappy, her head's foggy. We're running her around going, like, we're not gonna let diabetes stop us. I

Janelle 38:25
break our only insulin bottle in the bathroom and shatter it.

Scott Benner 38:30
Really, what ride was that it was,

Janelle 38:33
it was literally like the trip from hell, like I was like, why are we doing this? Did

Scott Benner 38:37
you curse when the vial hit the ground? Yeah, I

Janelle 38:40
did. And then, you know, but then I tried to stay calm for her. I, you know, I really did not want to, like, yeah, you know, rattle her. So I was super calm. I'm like, There's, this is no big deal. But I'm like, why didn't somebody tell me when I was leaving later? I'm like, Why didn't someone tell me when I was leaving the hospital? There's vial covers, you know, there's these plastic, little silicone things. Like, nobody said, go get one of those, or

Scott Benner 39:02
bring two. If I go somewhere, why would I need two? Yeah,

Janelle 39:05
I and I didn't bring two. My thinking was, you know, they have to be refrigerated. I don't want to deal with that. I'll keep one at home. We're only going to need one, you know, right? It's so I it was a mess. And I'm just like, why would you send me into that? Because I was already struggling so much with just accepting the diagnosis. And I'm a type A personality, so I wanted to, like, get everything down to the T and then you throw me, like I felt like, into war when I was already injured,

Scott Benner 39:35
getting Mickey Mouse. Am I right? Joe? It when the vial hit the ground, I might have gone. It's a world of laughter. It's a world of fears. I don't know, I don't remember the song, sweetie, but everything's gonna be fine. Don't worry about it. Let's go on Space Mountain now, yeah,

Janelle 39:50
we were actually by Space Mountain. We were like, in a bathroom right there, but yeah, and then she wanted to dose, you know, in the bathroom, which I know is like the horribles place. We're over that now. But. You know, it was the beginning, and I was letting her take the lead of what she was comfortable with. And like, that was, like, the worst decision ever. In the bathroom smelled like insulin. Oh, my God. I was like, oh, probably think I'm shooting up in the stall, but, you know, whatever. Yeah, listen,

Scott Benner 40:13
you guys are used to that vomit smell. Nothing bothers you. Yeah, yeah, you don't know. Like, I, by the way, I could do a 25 minute podcast episode on just you throwing the vomit sheets outside and then having to go collect them the next morning. I would have dug into that story like a lunatic if I didn't know that you had more to talk about. Because I am just, oh, I'm I'm just, I'm enlightened inside about the I just imagine you guys just picking up those sheets and being like, oh my god, this is horrible. Why did we have kids? Like the whole that's

Janelle 40:45
where we were at, my husband, my poor husband, you know, I go to work early in the morning, so he does more morning routine. So he was responsible for hosing them off. And he was just like, I'm done. I'm done parenting. I don't want to do this anymore. Like he was, you know, it was just, it was hard making

Scott Benner 41:03
these babies is so far in the rear view mirror. I don't really, I don't remember why we're doing this. No, I hear it. Oh, my God. Oh, so you, so you find through a friend, do you find the podcast? I want to get back this, because I run the risks, you know, all the time of acting like I'm pointing it to myself and going, look how great I am, and at the same time wanting to say your doctor's office was helping you manage a 13, A, 1c, and a podcast got you where

Janelle 41:32
5.9 and we are at 5.7 now I'm gonna

Scott Benner 41:36
go on Space Mountain 5.7 right now. That's wonderful. Good for you. What how does she manage now? What gear does she have?

Janelle 41:44
So we do have, we still have the, you know, Dexcom g6 and then we also have the OmniPod five. However, I do not run it in auto mode,

Scott Benner 41:52
so you're just using OmniPod basically. Yes, yeah, okay. Have you not tried it yet? Or did

Janelle 41:59
I have tried it a few times again, type A personality comes out, and I get really frustrated because I'm not in control, and it's just keeping her higher than I'd like. So after we went on the OmniPod, her a 1c went up to 6.1 from the 5.9 and I was like, that's it. We're not doing this anymore. We're going to manual mode, where I can control her basal and I have control.

Scott Benner 42:21
Oh, I'm not laughing at you, Janelle, but at least you know that you have control issues. That's good. But 661, would be amazing, by the way. But I take your point, if it's something you want to be involved in, then you know it's something you want to be involved in. I

Janelle 42:34
feel like it's less work than auto mode was for me because of your mindset, yeah, and because I just, there was a lot of correcting, you know, because I would just have her sitting, you know, in 160 for hours and not bring her down. It was really great for the lows. Don't get me wrong, but it's just, it's not aggressive enough. And I'm really hoping that, you know, within time they will lower that, you know, 110 to, like a 90, and then maybe she can set, you know, right above 100 but she was sitting at like 137 all night, and I just why when I could have her in the 80s or the 90s?

Scott Benner 43:12
Yeah, no. I mean, listen, I hope that all the pump companies continue to make their algorithms more aggressive to the point where they can manage the numbers that people are looking for if that's if that's what you want, you know, and it's fantastic and good for you for doing it. But you're not sleeping. What about at night? Can't you get her to 80 and then just go to bed and put it into auto it

Janelle 43:33
will, she'll slowly creep up to 130

Scott Benner 43:35
okay? And that's the target I am getting

Janelle 43:39
sleep because I have her basal so dialed in. She She rides between 80 and 100 at night. Janelle,

Scott Benner 43:45
are you trying to say that the information contained in this podcast is allowing you to do that 100%

Janelle 43:53
so before we got the OmniPod, I literally sat down and listened to all before I put it on her sat down and listened to all the Pro Tip series, had a notebook, took notes, learned vocabulary, because, you know, you're also shooting words in the beginning that we don't know. I'm like, What the heck is Basil? What the heck is you know this, so I'm, like, writing it in a notebook. I am like, going to school with your podcast.

Scott Benner 44:17
I'm Professor Scott, yes. Who's Jenny? Is she the lunch lady? No, no. She's like, Who is she? She's like, the principal. Probably, right, yeah,

Janelle 44:25
maybe the principal.

Scott Benner 44:27
I'm thrilled that it helped you. Like, genuinely, I feel proud. To be perfectly honest with you, I actually had a moment this morning. I know, if people use my Facebook group, a lot of people celebrate their wins in there, and it's really terrific. Like, but I don't ever do that. I never, like, go in and be like, hey, like, you know, you should see Arden's bolus that we, you know, or whatever. Like, I just don't do that, you know. I got a note from a friend today that said, Hey, if you haven't listened to your episode, like, listen to it like a fan, not like you're editing it or something. Like that. If you haven't listened to your episode called after dark prison, you should go back and listen to it. I just listened to it. Oh, did you? And so I turned it on this morning while I was taking a shower and screwing with the dogs and stuff like that, and dealing with the baby birds that we saved outside and, oh my God, and all that stuff. And I have to tell you, I got done, I went to the group, and I put up a post, and I was like, I actually said, I'm like, can I celebrate something with you guys for a second? Because

Janelle 45:25
I just read that right before we got on that episode. It is, it is a really good episode. Yeah. I mean, I loved it, and you deserve it. You do. I honestly think that you saved my life, my daughter's life, and my marriage.

Scott Benner 45:40
Oh, wow, I'll take a card at Christmas. Look at me glossing over the what you just said, which was so nice, like, I realized, like, you don't know how fast this goes, like, I record every day with somebody, and then those episodes go into a folder. They get magically through the internet, whisked completely across the country, where an editor takes care of, like, you know, the stuff you don't even know is happening, like gaps and noises and everything. It makes it infinitely more listenable and and sound better all that stuff. And and then I don't see it again until it comes back into another folder. And then the next time I see it, the truth is, is that I just kind of, like, I do the like, Hello friends and welcome to episode. Like, I do that, and then I like, drop in ads that people have bought, and, you know, I put them in where they go, and I packed the whole thing together, and I stuff it online, but I don't ever really listen back through it again, so I only have the conversation. I don't usually listen to them. But as I was listening to it, I was like, when I push record with with Stephanie in 1202, all I knew was she had type one diabetes and she had been to prison and nothing else. And you listened to that episode, that episode could be on NPR. It could be, yeah, you know what I mean. It could be a two hour interview with Howard Stern with somebody famous, like, it's really, you know

Janelle 46:56
how to ask the right question, I feel like. And you guide the you guide all your lists, or, sorry, your speakers through.

Scott Benner 47:05
Yeah, I don't think about myself that way, but I did today, and I was just generally speaking, I was proud of myself, and then an hour later, I'm very proud of what the management stuff did for you. You know what I mean? Like, it's, I'm thrilled for you, but you have to understand, like, I just started a podcast. I didn't think that 10 years later a lady named Janelle would come on and say, Hey, you might have saved my marriage and my sanity. And like, blah, blah, blah. Like, I didn't think that was gonna happen. Like, you know what I mean? Like, it's weird. Yeah, it's a weird position to ban. But anyway, today I am allowing myself to feel proud. Because normally, despite what you might think, when I'm joking around on the podcast, I generally walk around thinking, I'm not good at this. I have to do better. It's not helping enough people. Like those are usually the ways I think about the podcast. So I'm celebrating today. You should.

Janelle 47:53
Yeah, you deserve it. You should. You are part of myself. I hear all the time like, how can we reach more people? And I see that I you know, I know somebody else whose daughter has type one, and I just know that they're not getting the help that they need, and the family's just not capable of doing it on their own. And I'm just so frustrated that the hospital and the doctors aren't stepping in. Can

Scott Benner 48:22
I ask you a question you might be uniquely qualified to answer? If I could rerelease like bold beginnings or the Pro Tip series in Spanish, do you think that would help people? Yes, okay, because immensely it would not be in a human voice, I'm sorry to say, but I'm working on it right now, again, through AI, but here I think I can on a second, if

Janelle 48:50
they can find the podcast. Yes, I think then 100% because, like my mother in law, had a really hard time understanding the diagnosis. And I wish there was something that I could give her to listen to. Listen

Scott Benner 49:05
to this for a second. Let me see if you can hear this.

Speaker 1 49:07
Hola amigos y bienvenidos a la serie de consejos profesionales sobre diabetes del podcast juicebox. Estos episodio San sido remasterizados para una mejor calidad de sonido por Rob and wrong way, recording cuando necesitas que se haga bien Elise wrong way. Wrong

Scott Benner 49:29
is that reasonable?

Janelle 49:32
I think so. Although so all of my kids are in like a dual immersion school, so they've learned Spanish since kindergarten. So like my, you know, 17 year old is fully bilingual, and she will say, like, book Spanish. And that kind of Spanish is a little bit harder to understand because the general public, especially here in California, they don't speak book Spanish. They speak, you know, street Spanish. It's a little different. So

Scott Benner 49:59
the only. The only option I have at the moment right is to take a transcript from the episode, feed it through AI, let AI spit it back out in Spanish, then feed that back into the AI, and have it send out an mp three with like, that's not a real person speaking, that's a computer. And so that's my only option right now. There's no other way for me to do it. Do you think it's a waste of time, or do you think I should try an episode or two and see if it works? I think

Janelle 50:27
you should try it. Okay, I really do. If you can reach any other, you know, population that's not being reached, then I think it's valuable. Okay, all right.

Scott Benner 50:35
And then what I would probably do is I would probably launch a new podcast that was just juicebox podcast in Spanish, yeah, and then only probably do, like, bowl beginnings, pro tips, like, more management stuff inside of that. Because I don't, I don't think, I can't imagine that, like, my conversation with the lady in prison would, like, translate well, like, do you know they mean, like, back and forth conversation like I

Janelle 51:01
think. So I think at least having the Pro Tip series, having the definitions in there, I think because something that I also don't think the doctors realize is that they're using words that we don't know either, I didn't know what you know pre bolus was, I didn't know what your basal was. They're telling you fast acting and short acting insulin, but then they're not telling you all those things. But then when you go in the office, they're using those words. So I think even if somebody can hear those Pro Tips series in Spanish, then they're having they're being able to understand even their doctors better. I feel like,

Scott Benner 51:36
yeah, no, I agree. I The defining diabetes series, I think is really important, actually, yes. And for the exact same reasons that you said, like, they just start talking, and you just, your brain does its best to, like, fill in, but you're not going to fill in what basal means. On day one, they'll say basal, and then somebody else will come in the room and call it, like, long acting insulin, right? Or they'll call

Janelle 52:00
then you're thinking that they're talking about two different things. You know, that's what I'm saying, that you're just like, what's going on here?

Scott Benner 52:05
Yeah, when, when you talk to three different people, and one person says Nova log, one person says mealtime, insulin, and one person says rapid acting insulin, you don't know those three things are the same thing? No, yeah, no. It's, it's really, it's really a problem, actually. And, and this is the, to me, the quickest way to do it, like short episodes. Hey, hey, Jenny. We're here to talk about Basil. Basil is this blah, blah, blah. Here's a, you know, here's a contextual conversation about it for a few minutes. Nothing overwhelming. And, you know, not too long, then you move on. I want to give a lot of credit to somebody this, this lady named Laura kolojeski, she worked at sanafi diabetes years ago, and one of the things she did was she built an online dictionary for diabetes. And it's, it's, of course, the funk now it doesn't exist. Then, you know, their website's gone, etc. But that idea stuck with me for a long time about what a value that was, and that's why I made that defining diabetes series. That

Janelle 53:05
was a, that's a huge that series is was huge for me. So again, in the beginning, I was just added to the Facebook group, and even the things people were saying, I was like, What are they talking about? Like, and I was like, Googling in the search of the Facebook group, like the words, like, trying to figure out, you know what it was. I was like, What is looping? What is you know, I'm like, this is like a foreign language when you're first diagnosed. Do

Scott Benner 53:26
you ever see Jay and Silent Bob Strike Back? Janelle, no. At the end of the movie, they fly around the country and go door to door to all the people that made fun of them online and beat them up. It's kind of stupid and funny. I have this, like, daydream of me going door to door and making everybody listen to the bold beginning series.

Janelle 53:46
Yeah, I think, I think that would be, I mean, that's the first step again. When I first started the podcast, I kind of started listening randomly. And then I was like, I think I heard you say in one of the episodes about, you know, the um, old beginnings. And so I went back again with my little notebook. Now I'm, like, so seasoned, I can run why I'm listening to you and take mental notes. But in the beginning, I had to sit there with my notebook and, you know, like I said, write down all the words and go over them, and then that that a that abled me to listen to your other episodes and take information without being super confused. Yeah,

Scott Benner 54:23
no. There's no perfect way to disseminate everything like you want to. There's like part of you that wants to say, well, episode one should be defining, and then those first 50 should be defining, and then it should go into both beginnings, then pro tips and etc. But there's no way to organize it that way, and

Janelle 54:40
not even that. I learned something from every episode, even if it's not, if it's just someone talking I mean, it's super valuable for everything in my life, like even the prison episode they were just talking about. I was running yesterday listening to it, and I'm thinking, like, okay, my daughter's gonna be okay, just because I know. You know, she's okay, and she made through this, and she made it through that. So it's just, I able to relate to almost every single episode some way in my life. Oh, I'm

Scott Benner 55:10
glad that's one. I also like, you know, look, and I've talked about this before, but if I put it all out in order, nobody would listen to it that way either. It'd be overwhelming and it would be boring. You'd be like, Oh, my God, let's have 50 of these in a row, so you have to spread them around. But you know that when you do that, you're you're gonna stop somebody from finding it, or they'll miss a week and they won't see something like there's just no perfect way to do it. And the other, the other truth is, is that I didn't start with a with a blueprint for what I was gonna do with the podcast like this, I made this podcast as it came to me, like, I'm like, oh, now I'm gonna define words. And then I'm like, maybe I'm gonna make a Pro Tip series. And then after the Pro Tip series, someone said to me, would be nice if there was a series that's not quite as in depth as the Pro Tip series, like, oh, we'll do a bold beginning series. And like, I'm looking at my whiteboard now, and there's like, endless content ideas up there, and I do them when they make sense to me, and that's, you know, the only thing I have, like, and I only have so much time, and I gotta keep making a podcast in between, like, having conversations with people, because people are expecting content. If they don't get it, they'll go find it somewhere else, or they'll go listen to, you know something else, or watch a Netflix show, or something like it's there's a lot going on here. You know what I mean for me? Yeah,

Janelle 56:26
so I think you did an amazing job. I think it's awesome. Thank you. I, like I said, I listened to it almost daily. It's like my little therapy session when I'm running.

Scott Benner 56:35
I'm glad that's wonderful. Okay, Janelle, is there anything we haven't talked about that we should have?

Janelle 56:40
I just think I wanted to mention I don't know, I don't know how to say without going in too long, but

Scott Benner 56:45
you don't have a time limit. Go ahead. Okay,

Janelle 56:48
so I just recently found out that I thought my older kids were, you know, taking the diagnosis like a champ, and it wasn't really affecting them, but it just came to light that they were both very affected by the diagnosis in their own ways, and were struggling with it. And it was, you know, coming out in school and other, you know, behavioral things. And it finally came to light, and I was like, Oh, wow, this is, like, a family diagnosis. It's just not mom dad in type one, you know, it's the whole family, and it's, I just want to, like, tell the other parents out there like that are newly diagnosed, just make sure you're checking in on your other kids.

Scott Benner 57:30
Yeah. No, it is. It is really important. How did it come to light? What did they say something? Or did you kind of figure something out?

Janelle 57:38
Well, with my son, he was just struggling in a lot of aspects of his life. So I saw it there, and then my daughter literally told me what I have, I have medical anxiety from Ariel's diagnosis, and she wasn't in the hospital with us. She didn't come, you know, to the Children's Hospital. She didn't see her. But they were home alone. They were home alone by themselves, you know, with and I think maybe didn't know 100% what was going on or if their sister was going to survive. So I think that really affected them. And then we come home and we're, we're zombie parents for three months, you know, because we're trying to learn how to manage this disease, and we're so emotional and we're so tired that they were not getting the parenting that they needed. And so, yeah, it just really did affect them. And like I said, in different ways. And my son, I can just see it. I could see it. And my daughter actually told me, you know,

Scott Benner 58:34
do you think they're worried they're going to get diabetes or that just something bad is going to happen in general? Something

Janelle 58:40
bad is going to happen. In general, I think they both were, did the trial net and myself, and neither of them have any antibodies, not to say that. You know, it can't happen in the future. They I don't think they're worried they're going to get diabetes. I think they just are worried about what it entails. And then I think just seeing us so stressed and so run down during those first, you know, three to six months, I think just really affected them.

Scott Benner 59:10
I see, yeah, no, I can imagine. I'm sure my son tells me sometimes, like he's 24 and he's like, it wasn't easy. And I was like, okay, yeah, yeah. So, I mean, as a boy, he doesn't talk too much about it, but you know, to say that it like didn't bother him is wouldn't be fair. And at the same time, while it was happening, I didn't really think anything was happening, like he seemed okay to me. And we put a ton, we put a ton of effort into making sure there was as much equality as possible, but he still feels like it wasn't equal. And there's the thing, and that would happen in kids with, with or without diabetes. They're all, you know, go talk to big families. Every kid thinks that one of the other kids was a favorite. You know what? I mean? Yes. So, so it's kind of common there, too, but I'm glad you brought that up. That's a sincerely something to be paying attention to. And. Be working against if you have kids with type one, that's for sure. Yeah. Oh, Janelle, I appreciate you doing this very much. This was great. Did you cry more or less than you expected to bless good for you. That's

Unknown Speaker 1:00:12
excellent.

Scott Benner 1:00:14
How are you guys right now? You and your husband? Are things better?

Janelle 1:00:18
Yeah, I think things are better. I mean, I think we've just, I really think the diagnosis has helped us grow as people, individually, and then also in our marriage. I mean, the first again, the first three months were crazy and we hated each other and we wanted to murder each other because we had no sleep and, you know, we were, we felt like we were miserably failing. But I think now that we have a sense of like, okay, we can do this. You know, she hasn't a somewhat normal a 1c and I just think learning to live day by day and in the moment and not stress over the big things has just, yeah, I think it's really helped. Good.

Scott Benner 1:00:56
Well, I'm glad that's wonderful. I think there's opportunity, obviously, to grow in any situation, but it's hard to see it sometimes, and even harder to embrace it at times as well.

Janelle 1:01:06
Yes, yeah, really, especially when you're, you know, having no sleep, please,

Scott Benner 1:01:10
very little sleep and and all that guilt, right? Have you gotten rid of any of it yet? Or is it still with you? I've

Janelle 1:01:16
really been working on it, and I think I have gotten rid of a lot of it. It still pops up here and there, but the first six months, I would cry almost daily. I mean, I would just be driving, and I would just break down crying because I just felt so guilty. But I really embraced the fact that I did save her life. I did take her to the emergency room. I didn't wait till the next day to take her to the doctor. So my mom, you know, vibes, did come in, and I did do what she needed. That's

Scott Benner 1:01:50
excellent. Good for you. Yeah, don't, don't let go of the good stuff that you did. Seriously, like, I've been having a couple of conversations with people where this has come up recently, and you can't choose to just look at the part that went wrong. That's, you know, just not good for you. Okay. Well, I really appreciate you doing this with me. Thank you so much. Can you hold on for a second? Yes, thank you. I

want to thank the Eversense CGM for sponsoring this episode of The juicebox podcast. Learn more about its implantable sensor, smart transmitter and terrific mobile application at Eversense cgm.com/juicebox, get the only implantable sensor for long term wear. Get Eversense a huge thanks to the contour next gen blood glucose meter for sponsoring this episode of The juicebox podcast, learn more and get started today at contour. Next.com/juicebox Did you know if just one person in your family has type one diabetes, you're up to 15 times more likely to get it too. So screen it like you mean it one blood test. Can spot type one diabetes early. Tap now talk to a doctor or visit screened for type one.com. For more info. If you have type two or pre diabetes, the type two diabetes Pro Tip series from the juicebox podcast is exactly what you're looking for. Do you have a friend or a family member who is struggling to understand their type two and how to manage it? This series is for them seven episodes to get you on track and up to speed. Episode 860, series intro, 864, guilt and shame. Episode 869, medical team. 874, fueling plan. Episode 880, diabetes technology. Episode 885, GLP ones, metformin and insulin. And in episode 889, we talk about movement. This episode is with me and Jenny Smith, of course, you know. Jenny is a Certified Diabetes Care and Education Specialist. She's a registered and licensed dietitian, and Jenny has had type one diabetes for over 30 years. Too many people don't understand their type two diabetes, and this series aims to fix that. Share it with a friend, or get started today. I can't thank you enough for listening. Please make sure you're subscribed, you're following in your audio app. I'll be back tomorrow with another episode of The juicebox podcast. Hey, what's up, everybody? If you've noticed that the podcast sounds better and you're thinking like, how does that happen? What you're hearing is Rob at wrong way recording, doing his magic to these files. So if you want him to do his magic to you, wrongway recording.com, you got a podcast. You want somebody to edit it. You want rob you.