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Arden's Day Blog

Arden's Day is a type I diabetes care giver blog written by author Scott Benner. Scott has been a stay-at-home dad since 2000, he is the author of the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal'. Arden's Day is an honest and transparent look at life with diabetes - since 2007.

type I diabetes, parent of type I child, diabetes Blog, OmniPod, DexCom, insulin pump, CGM, continuous glucose monitor, Arden, Arden's Day, Scott Benner, JDRF, diabetes, juvenile diabetes, daddy blog, blog, stay at home parent, DOC, twitter, Facebook, @ardensday, 504 plan, Life Is Short, Laundry Is Eternal, Dexcom SHARE, 生命是短暂的,洗衣是永恒的, Shēngmìng shì duǎnzàn de, xǐyī shì yǒnghéng de

Filtering by Category: Guest Posts

Diabetes Blog Week Day 1: I Can...

Scott Benner

I can...

Diabetes Blog Week begins on Monday, May 11 and runs until May 17. The day one writing prompt is, "I can...".

I realized last week while talking to the creator of Diabetes Blog Week, Karen Graffeo for the Juicebox Podcast that I can help people in the diabetes community that want to share their thoughts during blog week... but don't have a blog.

With that in mind - If you are a person who lives with diabetes, or you love someone that does and you don't have a blog... I'm excited to offer Arden's Day as a way for your words to find their way into the community. 

If you are interested in publishing your diabetes blog week writing on Arden's Day contact me by email and we'll make arrangements for your post to be featured during blog week.

I can help the diabetes community to grow...

My conversation with Karen Graffeo is available now on the podcast. You can listen to the Juicebox Podcast here, on iTunes or with your favorite podcast app. Karen's episode started out as a conversation about Diabetes Blog Week but quickly grew into a discussion about what it was like to be a child with type 1 diabetes over thirty years ago. I think you'll love hearing Karen talk about growing up with type 1 diabetes, how she imagined blog week and much more.

Share your life with diabetes today. Your transparency will help others in ways that you can not imagine. You can find out more about blog week and add your name to the participant list here.


Dealing with a Severe Adhesive Allergy

Scott Benner

That’s Not Just Contact Dermatitis

This is a guest post from a D-mom named Rachel Morgan who was a recent guest on my podcast. At one point we spoke about her son Henry's severe adhesive allergy and I asked her if she would be interested in contributing a blog post on the subject. I think you'll agree that Henry's situation was dire and that his mother's insistence on finding an answer that would allow him to continue to use his diabetes technology, is nothing short of impressive.

Henry's back. Click to enlarge 

Living with diabetes means you get gut punched several times a week, whether it’s a bad low, an out of control birthday party complete with grocery store cup cakes,  chips, soda, and pizza, or simply watching your sleeping child hold out his finger for a 2 am BG check. Our three year old son, Henry, was diagnosed in March of 2014 and by late May he was on an Animas pump and Dexcom. With these tools in place, we felt some of the control diabetes had devoured starting to return. We could see what a long car ride did to Henry’s blood sugar, so we increased his basal by 30% and had perfect numbers on a 15 hour car ride. Double arrows down caught a scary low of 48 on a hot August day at the zoo. Then all the sudden, we were double and triple gut punched in October of 2014 when this happened. 

Within 48 hours the reaction became systemic. Click to enlarge

Henry developed a tape and adhesive allergy and within 48 hours the reaction became systemic. 

Click to enlarge

Type 1 is an autoimmune disease, and Henry also developed a severe tape and adhesive allergy. His primary care physician and Endo were worried about anaphylactic shock; he was given oral steroids (hello, high blood sugars!) and a horse load of Benadryl, and we were told to stop using devices with adhesive and go back to multiple daily injections (MDI). We took the Dexcom off but we wanted Henry to stay on the pump for the benefit of his long term health. I became that mom. I scoured the internet and made an insanely detailed power point, which I sent to every medical professional who would listen. I researched colostomy care because I felt we were really dealing with skin breakdowns and wound care. 

I found a CDE through Children with Diabetes who lectures on tape and adhesive allergies, and she called me back that night, and a few days later some of her personal T1D supplies showed up in our mailbox, and with a few more phone calls, research, and a little trial and error, here’s what we do to prepare a pump site. 

Click to enlarge

  • Wash area with warm water and antibacterial soap— Do not use alcohol
  • Completely dry the area
  • Apply one puff of Flonase (sweet-talking or demanding this prescription from Endo or PCP is necessary)
  • Apply thin layer of Cavilon barrier cream (Amazon)
  • Apply a  6cm X 7cm  layer or Tegaderm HP 9534HP (NOT Tegaderm!!) Check with your pump supplier— some insurances cover this and it’s shipped with pump supplies. You can also purchase Tegaderm HP from Amazon.
  • Place inset through Tegaderm HP
  • We place another layer of Tegaderm on top to secure the pump site and provide an extra layer or barrier for the adhesive of the detach inset
  • When wet, blow dry site with hair-dyer on a cool setting
  • Apply prescription Hydrocortisone after removing the Tegaderm HP and old site
  • Remove any extra adhesive from the old site at bath time with calendula oil
A rashless, T1D strong Henry today!

A rashless, T1D strong Henry today!

The wounds eventually healed after six months. I’ve heard some people describe these wounds as burns, and the skin damage is extensive. Henry’s skin is finally healed, and we’re about to try Dexcom again, using the above preparation method, but with a hydrocolloid barrier, like Johnson & Johnson Tough Pads, sandwiched between the layers of Tegaderm HP. I’ve read about people successfully using Duoderm and blue tape, a kind of baby tape used in NICU’s, as a barrier and adhesive method, but we have yet to try these products.

Being a T1D parent is really difficult, so I’ve learned to find joy in the small victories, like staying on a pump. We’re taking it one number at a time and moving forward. 

You can listen to my conversation with Rachel right here in this post, on iTunes, Stitcher, at JuiceboxPodcast.com or with your favorite podcast app.

The insulin bottles pictured in the header of this blog post are from the first eight months of Henry's life with type 1. Rachel knitted a heart for each... If you have questions about the process Rachel described in this post, you can contact her here.


Inspired by Conversation

Scott Benner

I enjoyed having Kristina and Greg on my podcast so much that I asked them if they'd be interested in contributing a blog post to Arden's Day. It suffices to say that the topic Greg chose to write about warmed my heart! After you read his piece you can listen to their episode with the link below on iTunes, Stitcher or via the player that I've placed at the end of the blog post. Enjoy! - Scott

Time to Get More Aggressive!

Last week, my wife, Kristina, and I had the great pleasure of being featured on the 9th episode of the Juicebox podcast. It was a lot of fun and we both loved listening to it!


For parents of a child with type one diabetes, it’s fairly common for one parent to assume the majority of the diabetes management responsibilities. In our case, we pretty much split the duties (although, in full transparency, my wife does way more than I do!). We thought this would make for an interesting and entertaining discussion. When Kristina pitched the idea of an interview to Scott Benner at the Juicebox Podcast, it went like this….

“We'd love to be a part of one of your upcoming podcasts! Not sure if you've had any D-mom/D-dads reach out as a team to chat with you but we thought it might be fun. We have VERY different styles of managing Isabella's diabetes but it works.”

But, I’ll be honest; the podcast was completely Kristina’s idea and I really didn’t have much of a choice in the matter. My wife is extremely outgoing (understatement?) and jumps at the chance to speak in public forums. I, on the other hand, have always been a bit more reserved and would prefer to avoid being the center of attention, if possible.

So, for me, the thought of being interviewed is somewhat anxiety-inducing from the start and more so when my wife informs me that the interview very well may include some “newlywed style” questions to see how well we know each other. While I think know my wife very well (for years she has been preparing me for the off chance that we might someday appear on a famous live TV game show….I can’t count the number of times I’ve heard ”honey, remember this for when we’re on the game show!”), needless to say I started to get slightly nervous.

Kristina went first while I sat in the other room pretending as if I was completely calm, cool and collected and not at all anxious about the interview. All I could hear was Kristina’s muffled voice followed by her seemingly uncontrollable laughter, most likely telling one of her favorite “Greg stories.” Oh boy. Here we go…

It was finally my turn to join in on the fun. Scott immediately made me feel at ease; my nerves started to melt away and I actually started to enjoy myself. We spent quite a bit of time talking about the team-based approach that Kristina and I use for managing diabetes, which works very well for us.

While Kristina and I do act as a team, we have quite different approaches in the way we prefer to manage Isabella’s diabetes. Kristina tends to have a heavier hand with insulin (often generously “rounding up” carb counts), which helps to avoid highs. I, however, prefer to take a more conservative approach with insulin to avoid very low lows, especially overnight. The thought of what could happen to Isabella as a result of too much insulin absolutely terrifies me.

Scott seemed to be intrigued by the fact that we work as a team but with very different approaches. As a veteran type one diabetes parent, Scott shared some stories about his approach to managing diabetes. He talked about how technology, especially Arden’s Dexcom CGM, has enabled him to get comfortable with taking a very aggressive approach to insulin. This approach has led to very tight control (I still can’t believe Arden’s last A1C!).

This part of our talk really hit home.

While I’ve known that getting a bit more aggressive with insulin is likely to lead to better outcomes, I am completely terrified that I might kill my daughter with too much insulin. Our conversation helped me realize that I need to get over this fear. We have amazing technology at our disposal (including Isabella’s brand new Dexcom Share2, which is an amazing game-changer in my book!) that I can more fully leverage to help me get comfortable with becoming more aggressive with insulin, which will ultimately result in lower A1Cs, better overall control and a healthier little girl.

After finishing the interview, I believe one of the first things I said to Kristina was, “I’m gonna get more aggressive!”

It’s time to get over my fear. Thanks, Scott, for pushing me over the edge.


Greg Dooley
InspiredByIsabella.com

Thanksgiving Dinner (Skip if you read Snuffleupabolus)

Scott Benner

Here’s a little tidbit that I’ve literally never told anyone, ever. When I see a turkey, I hear the Sesame Street character Snuffleupagus in my head. He says, “Buuurrrd.” Not a huge revelation perhaps, but it’s weird enough that it shouldn’t be shared. In the past, as the father of a child with type I diabetes, I’ve conjured other words while preparing Thanksgiving dinner. Those words were R rated and not appropriate for this blog post. These inappropriate words would pop into my head as I tried to imagine how many carbohydrates were in a scoop of mashed potatoes, homemade stuffing, dinner rolls, fruit, gravy and all the rest of the seemingly unquantifiable holiday treats that cover every inch of counter top in my kitchen.

I say in the past because I was finally able to get out of my own head last year and find a way to give my daughter Arden insulin on those long, food-heavy holidays without making myself crazy or causing Arden to feel like a science experiment.

I think I will call the result of my revelation, Snuffleupabolus. 

Could I measure everything that Arden eats on Thanksgiving? I could. But I’m cooking and cleaning, while socializing with family, trying to sneak a look at a football score and balancing the preparation times of more dishes than I normally prepare in a week. I’ve tried unsuccessfully in the past to count each morsel, but too often the results were uneven. I found that putting in so much effort and care without achieving the desired result to be defeating, and the end of the day brought blood glucose results that made me wish that we skipped Thanksgiving.

All of the day’s tasks are secondary to keeping my daughter’s blood glucose in range. Too low, too high, too inconstant. Each possibility comes with its own physical punishment for my sweet girl. I bet that you know what I want more than a golden brown buuurrrd, perfect stuffing or a well placed table. I want Arden to enjoy her holiday with minimal diabetes interaction or the unpleasant feelings that come with riding the diabetes roller coaster. The enemy of that desire, especially on Thanksgiving, is the difficult to count mixture of complex and simple carbs that tempt at every turn.

During the day we employ a cadre of slick diabetes moves. Increased temp basal rates to combat snacking, pre boluses to help get ahead of carb-heavy meals, and we lean heavily on Arden’s DexCom CGM for guidance (If you don’t have a CGM, frequent testing can produce similar data). But when that meal plate comes with its potatoes steaming and stuffing so plentiful that covers Arden’s slice of buuurrrd - I Snuffleupabolus. I do my best to guess at the carbs, but honesty, Arden’s belly only holds so much food. So if my estimate doesn't match the insulin amount of the largest meal that I’ve seen her eat in recent history, I increase the bolus to match that number. Likewise, if the suggested amount of insulin is greater than the largest recent meal, I decrease the insulin. The odds that Arden won’t eat much more than on a normal day are pretty good. Thanksgiving or not, that little kid can only eat so much food and I’ve found that historically most of her large meals need a similar amount of insulin. There is nothing scientific about this method and I only whip it out on days like Thanksgiving… but I’m getting good results. 

After the malay, I watch Arden’s CGM closely and test, we aggressively tend to high numbers and treat lows with pie and other desserts. The only real time-sensitive planning that I do around food? I like to pre bolus the main course 15-20 minutes before it’s served (DexCom admittedly makes that easier) and I make sure that dessert is finished and the eating frenzy is over, three hours before bedtime. I want Arden’s active insulin to be finished before bed so that decisions can be made about overnight care from a fresh perspective. This is something that I strive for everyday but is extra important on days that contained high amounts of exercise, stress or eating. Thanksgiving day contains all three of those variables in our house, as I’m sure it does in yours.

I hope that your family has a wonderful Thanksgiving, that your home is warm and full of good friends, loving family and one Snuffleupabolus that allows you to enjoy it all with a light heart.

buuurrrd

 

This post originally ran as part of a Lauren's Hope/Life Is Short, Laundry Is Eternal giveaway. I liked it so much that I wanted to run it in it's entirety, here on Arden's Day. Thanks to Lauren's Hope for not being weird about reposting! They're good people, please check out thier blog if when you get a chance... blog.laurenshope.com

Snuffleupabolus

Scott Benner

snuffleupabolus.jpg

The lovely people at Lauren's Hope are giving away two $50 gift certificates to their site along with two autographed copies of my award winning (I know, fancy right!?) parenting memoir, 'Life Is Short, Laundry Is Eternal". Just head over to their blog to read my piece about managing Thanksgiving day BGs, then you can enter to win the contest or do whatever else goes on over there.

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Good luck in the giveaway! - Free Stuff Friday with Scott Benner