#158 Dexcom G6 Overview with Kevin Sayer, Dexcom President
Kevin Sayer returns to the podcast to fill us in on everything you want to know about the Dexcom G6...
The Dexcom G6 has been approved by the FDA! Kevin shares what's new, different and better about your favorite CGM. We also talk about timelines to market, functionality and much more.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
This is an exciting day. Hello and welcome to Episode 158 of the Juicebox Podcast. Today I'm going to be talking with the President and CEO of Dexcom. Kevin Sarah, Kevin's making, I think his third appearance on the podcast and today we're talking about some brand new news. Just yesterday the FDA approved the Dexcom g six continuous glucose monitor, and Kevin and I are going to talk all about it. This episode of the podcast is sponsored by Omni pod and Omni pod of course, is a tubeless insulin pump and is the one that Arden has been using for GE since she was four years old. And we absolutely love it. When you're talking about bumping and nudging blood sugar's on the podcast, we do it with it on the pod and you could go to my on the pod.com Ford slash juice box with a link in your show notes to find out more. The podcast is also sponsored today by Dexcom Dexcom, makers of the new g six continuous glucose monitor energy five, it's all good dexcom.com forward slash juice box the links in your show notes.
Guys, we're going over it all today. As you know, the Dexcom g six has just been approved by the FDA. I've got Kevin Sayer here from Dexcom to talk all about it everything he can talk about right now. timelines are all little up in the air, but we go over it. So when can you expect the new g six? How much is it going to cost? Is there an upgrade program? What's with this thing? They say there's no more finger sticks, etc, etc, etc. It's all coming right now.
Nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before being bold with insulin.
Unknown Speaker 1:52
Kevin fair, Kevin. Hey,
Scott Benner 1:54
Scott, how are you?
Kevin Sayer, Dexcom CEO 1:55
I'm good. How about you? Very well. Thank
Scott Benner 1:57
you. I've been thinking about you a lot this morning. I'm sure you were thinking about me too.
Kevin Sayer, Dexcom CEO 2:03
I'm ready. I knew we were gonna chat again. I was looking forward to it.
Scott Benner 2:07
Well, I was thinking about you because I thought, gosh, how many times has poor Kevin had to say what I'm gonna ask him about?
Kevin Sayer, Dexcom CEO 2:14
No, it's fine. I you you have a great. I always get good feedback on on your podcast. So I I'm excited to chat about this with anybody. Kevin, is
Scott Benner 2:25
this your third time on the podcast? Maybe? I believe this is my third time on the podcast. Yes. Appreciate it every time you've been on Thank you so much. I forget where I was exactly sitting in my living room in the afternoon. And I saw Oh Dexcom got the the approval from the FDA for the G sex. Oh, this is exciting. And I jumped up to the, you know, I have a blog and everything like that says like, Well, let me let me try to get this information out as quickly as I can. I like to be first covered. And, and and as I did it, I found myself getting more and more excited. So I think it's interesting, when the real life kind of implications of the technology overwhelm my kind of like feeling like my job feeling I have for the blog, you know what I mean? So I was just all my excitement is steeped in what I expect, but don't really know anything about so I'm just really excited to talk to you and find out the real details and see if my expectations are going to meet reality or not. What do you think are the the highlights of this leap from G five g six?
Kevin Sayer, Dexcom CEO 3:30
The list is pretty long. Let me start with with the fact that there the system does not require any calibrations.
Scott Benner 3:38
As you're talking, could you do me a favor and tell me? How do you accomplish that? Like is there as much as you're allowed to say I'd love to know the like the behind the curtain of like, how do you get to that.
Kevin Sayer, Dexcom CEO 3:49
I certainly can't go into all the details, but I can get into some of them. Obviously, when a sensor is factory calibrated, that means we have a good indication how that sensor will perform inside of of somebody's body. So in essence, the software for that particular sensor experience would anticipate the performance of that sensor to happen in a certain way. And I can't get into the specific specifics of how we do it. But that's how it's done. But more importantly than that than that, you know that my new detail it relates to the processes and controls and the science that we've developed over the years. When we went down the G six path, for example, when we started we were gonna have all the mechanical features I'll talk about in a minute, but keep the same algorithm. But our our data scientists are going to scientists came and said we think we have a better way to do this. But it's going to take a little more time and we sat in a room and said but but if it's going to be better, let's do it. So the algorithm the software has been upgraded to be more consistent and recognize how the sensor performs the manufacturing processes again, we've got certainly one new membrane material involved in this On the sensor because the sensor blocks acetaminophen, something that people have been concerned about forever, getting a high reading, if they take, you know big dose of NyQuil to go to bed at night, the last thing you want to do is wake up with a high went, when you may not be as high as it says you are we blocked that now. And so there's a lot of core fundamental technology that makes this a more reliable and more steady, more consistent experience. That goes into factory calibration. Okay, now I will add on top of that is disclosed in our materials. Got, we do have the option. And we did this for the future almost more than the present. If people would would rather calibrate their sensors if they have a young child, and you really want to make sure and feel they're more dialed in. And they calibrated down Option exists within the menus as well. And so if somebody wants to calibrate their, their system, they can't.
Scott Benner 5:54
And so I saw because you guys were really nice and sent me out like this little kid of demo supplies, which by the way is really cool, because the first thing that struck me is that the applicator is way smaller than I thought it was from the photographs
Kevin Sayer, Dexcom CEO 6:05
well, so I started with no calibration, as far as their features, let's go to the insertion system for a long time. And one of the biggest obstacles, I'll say obstacles that new patients have had to overcome is is the way our sensor was inserted. It just looks intimidating, even though in most cases, it doesn't hurt. And it's fair and it is very effective. I mean, that technology served us for more than 10 years it it was a good platform. But it still isn't something that when you look at it to be a mainstream consumer device, this new applicator the experiences is pretty remarkable. You peel the tape off the bottom, you put it on your body where you can insert your sensor and flip the safety tab off the button on the top of the sensor push a button and you're done. And and and the applicators done and it's in your body. And we effectively from an engineering standpoint, replicated automated basis what happened with that manual sensor that you did before where you push the plunger and pulled the ring back. That's all automated now. And that all happens in milliseconds, not seconds or two seconds, it happens very, very quickly. So a patient will put it on and click the button I've had a couple of times where I've I've been involved with with people and Human Factors type work where we didn't, we said I'm gonna put the sensor in on three and you tell me if it hurts. And then I did this to somebody, so I have to confess, then I push the button. And then I said 123. And they said I didn't feel it, I didn't feel I push the button before I started counting it, it's that much different of an experience from mechanical nature. And then the profile of the transmitter is much lower. When I go to the diabetes camps, or go to see WD de or even you know nada, as we see all the people wearing our product out there. And that transmitter just always looked too big to me and the guys who will tell you I push and push and push for smaller, this is a very good advancement for patients. As far as the profile it will stick, you know won't get caught in your clothes as much. You notice a very big difference.
Scott Benner 8:21
While I'm holding, I'm holding the demo of it in my hand and it barely the transmitter barely barely barely sticks above the sensor
Kevin Sayer, Dexcom CEO 8:28
bed. Yeah, it's it's it's much smaller and much better. So you get to the convenience of the experience. And it's it's much nicer the 10 day were labeled indication, the center certainly performs out to 10 days very well. Gee, there's a new alert, there's a predictive low alert that if you're going to hit the are are very low alert of 55, it's going to give if you turn it on that alert again will come to you like 20 minutes before I think it's 20 or 30. I don't know the exact number on that alert better predictive low, is probably more more useful for some of our patients than a threshold alert where you go straight to 70. You know, and he doesn't work till you get to 70. The other thing that g six has, and it allows us the same flexibility. And all the same connectivity features that g five did, I will have an Android and an iOS app will still be able to share data, patients will still be able to caregivers, they'll be able to run share. And the flexibility of the G six app is similar to our most recent g five app release whereby there's flexible alert schedules that you can set whereby you can set a different alert schedule for the middle of day than for the rest of the day and things like that. So we think it's a great product. I would tell you as I look at it it it really is what I'd always hoped CGM would be and now that we're here we're going to push Yet to get it even better, so it, it really is the beginning of a great day when we launched g4 in 2012. That in my mind was the first time that we had delivered the promise and this is, this is what CGM could be because it performs so much better than our our seven plus system. And it's obvious in the growth, we've experienced the depth sensor platform, and we've used the same sensor through G five, really led to increased adoption and had a big, a big, big influence on on patients lives. g six is another platform change for us. It's every bit as important as we went from seven plus to g4. And this is something we can build on with future generations of products for a number of years. So we're really excited about it.
Scott Benner 10:46
Well, I mean, I couldn't agree with you more I had we started with a seven plus. And it was I mean, at the time it was it was fantastic. Yeah, absolutely. And then the g4 was such a leap. And then the share kind of when share started creeping in, I thought, wow, this, this ups the game for what this is for, for, you know, caregivers of people who care about people with diabetes, big leap, I found the G five to be I thought much more accurate to finger sticks, then I then I found the g4 to be and it wasn't to say the g4 was way off. I just there was more consistency to the accuracy. From there.
Kevin Sayer, Dexcom CEO 11:19
There was a new algorithm we updated the algorithm from G 40. g five, we have a new algorithm in G six.
Scott Benner 11:26
Yeah. And so you didn't just change the algorithm for G six, but but it's also whatever this little whatever this little magic sensor wire here is, it's different as well.
Kevin Sayer, Dexcom CEO 11:34
There's some new membrane technology on the sensor wire. Yes. And that's how we block the acetaminophen interference. So the manufacturing process is different. Like I said, pretty much everything we do. And I've said this number of times today, pretty much everything we do with G six is different than what we did before. And so this is going to be a really rapid, a big change for us.
Scott Benner 11:58
Is there much of a letdown, or behind the scenes, you're working towards whatever your next step is.
Kevin Sayer, Dexcom CEO 12:04
There's no let down here, what we're so fired up to get this approval and get this product out. But you know, we have, and we have an r&d close to you between 350 and 400. People Well, when you take all our software engineers, we had all of them together at an off site meeting, I think it was last week where I got to speak to them. And it's pretty fun I they don't get to let out, we focus on everything that we can do to make these systems better and meet patient's needs in the best way possible. So with G six, this is now an execution story to a large extent, we've got a laundry list and get it out there has got to perform for the masses the way it's performed in our studies, right. And we've got a great track record of doing that in the past. And we'll continue to do that in the future. And this is a global launch. This is not just a domestic most of our products we've done you know domestic first are international first and waited a while and did us know waiting here. We're going to launch in the US here in the second quarter. And then we helped roll we're gonna roll Europe out in the second half of 2018. We're gonna go everywhere with this hit Canada. And
Scott Benner 13:15
I have to tell you, a lot of people in Australia listen to podcasts and Hi guys, but they they reached out to is that do we hit Australia in Canada,
Kevin Sayer, Dexcom CEO 13:24
I don't have the timing for all the countries will roll. A lot of it depends upon the mark regulation and what the regulatory authorities accept. There are some places where we have to do additional filings. And once this is approved, then we'll hit CE mark, and then we have to do some additional filings in some of these countries. After we get seen mark. I don't have the schedule of all the countries in front of me, but it will get to Australia. Okay. At some point in time, the Australia community's been great for us.
Scott Benner 13:50
I swear to you, I just looked up one day and I looked at the map and I was like why do people listen in China and as well as clicking on the app and like we can all the people that listen to Australia. Let's talk for a second about the Omni pod. Sure it's simple and discreet and waterproof. What does that mean? Here's one example. Do you know on the Omnipod website, they give you the steps for using the pod step one, fill the pod. Step two, apply the pod step three push starts. So let me say it again. The Omni pod insulin management system is a tubeless insulin pump that is precise, flexible, simple, discreet, and waterproof. It gives you the kind of peace of mind that you're looking for. How would you try a free demo pod? You can go to my Omni pod.com forward slash juice box or click on the link in your show notes. what'll happen is you'll fill out the tiniest bit of information like your name, your address, that's pretty much it. And you're contacting Ollie pod and tell them hey, I'd like to try a demo. Now the demo is a free, nonfunctioning demo pod, but you'll still get the pod you can hold it and see what it's all about. You can apply it to your skin where for a while, it's really kind of great. And then if you like it, if you're like hey, I do really like the Omni pod. Scott told me I would and I do think Just keep the process going with Omni pod and they'll, they'll help you get started. That's pretty much it. If you don't like it, it's not like they're gonna chase you around like a, like you owe money, they're just gonna be like, Alright, it wasn't for them, whatever. So there really is no reason not to try. I mean, it's free, right? They're not going to oblige you to do anything. It might as well give it a try and see what you think. I mean, listen, how would you like this to be your processor, putting on your insulin pump, fill the pod, apply the pod press start. So it's that easy, and it's tubeless. And there's no obligation, I just get to try a demo app. I'm looking for reasons not to do it. But I can't think of any, I think you should try my omnipod.com forward slash juice boxes. Let's get back to Kevin Sanger, huh. Let me drill down a little bit with some of the stuff so no finger sticks. Because you don't have to calibrate but you can calibrate. So when you're putting the new sensor bed on, there's this, because I have the demo receiver here, what I saw was, I can I guess scan a code that's on the sensor bed, or I can choose not to.
Kevin Sayer, Dexcom CEO 16:02
And so the way it works, and we're getting into a lot of details here. But the way it works is if you're using the mobile app, for example, when you put in before you put the sensor on, you scan the sensor box, and that are the bed, the bottom of the sensor wherever the barcode is. And that's what gets the factory calibration code into the algorithm. If you use the receiver, you would enter that code manually or scan it through See, I think there's even code you have to enter it. Okay, if you don't enter the calibration, if you don't enter that code, and then the center, we go into calibration mode. So the code is not a Oh, you got to do scan it with your phone. It's very it's relatively Yeah,
Scott Benner 16:44
no, I just I, I was trying to understand why there was an option to do one or the other. And because, you know, I think it's I don't think it's a big secret that, you know, we people restart their sensors with G five and G four. And I think I just took Arden's off after like the second restart the other day well, and as I did it, I have to say to you, the last three days of it was convenience and laziness, I should have taken it off. And I, and it made me really think about what we're talking about here today, because there was a drop dead moment where I started trusting what I was doing more than I should have. And it wasn't a safe situation anymore.
Kevin Sayer, Dexcom CEO 17:20
You know, it's funny you say that. Because as part of the classification, what the FDA did with us, with the special controls around this de novo approval, and one of the special controls is the center has to shut off at the end of the period that has been proven clinically accurate, that the patients can't restart it anymore. And within no calibration algorithm, you can understand the science behind that. Because if we assume it's a brand new sensor, a brand new sensor behaves different than one that's been in your body for 10 days that you would restart, that the algorithm assumes it's brand new. And then you could have issues with no calibrations. We didn't ever test this. Because we've never tested them, you know, I mean, we're labeled for we have a labeled indication, right? So then you could end up trusting something that you shouldn't trust I plugged the FDA for doing that, I think they did the safest thing for patients and 10 days is better than seven. And ultimately, it's our objective to get this thing out to a longer period of time to get it out to 14 days to where by the restart, that you've done in the past doesn't become an issue, but it's going to have to perform for those extra days. And one of the other features in this new algorithm. I'll give you another example of one. If we see the sensor acting app, or if the software sees a sensor not behaving, it will shut it off early and say you know what, this isn't working, call us. Okay, because we can we can detect things and again, all about patient safety. Yeah. All about making that experience better.
Scott Benner 18:50
Omni pod does the same thing. if if if the onboard system decides this thing's not right, then it's about your safety at that. But let me ask you a question. So I have two questions wrapped around this. The first one is his first day accuracy improved.
Kevin Sayer, Dexcom CEO 19:05
We believe it is. We believe it is more consistent. If you look at our clinical data, the first day accuracy is is very good. Okay. We think it's very consistent. I don't have the G five tables in front of me, but from my own personal experience in wearing them I can tell you I've had no first day problems but I don't have diabetes, either.
Scott Benner 19:23
I also don't see you know, it's funny i i don't see a lot of issue on first day, but then I hear some people that do and I don't know if that's wrapped around how they calibrate or what they how they handle.
Kevin Sayer, Dexcom CEO 19:33
I'm not sure actually I can tell you it's more physiology than anything else. Oh, okay. It because the way your body handles the, the puncture that's created by the needle when the sensors inserted. I think it varies from person to person, but by and large. We've seen good first day performance with the G six and that was one of our goals is to make the performance better across all Mondays.
Scott Benner 19:56
Let me let me ask you this a moment ago you said you hope to get it from 10 To 14 days one at some point, would that be is the goal to get the 14 days with the current year?
Kevin Sayer, Dexcom CEO 20:08
Not this year, we wouldn't do it this year. And that would be at earliest to 19. Okay, situation, and we'll have to run more clinical studies to do that. So stay tuned. But that's certainly our that's certainly our plan right now. Cool.
Scott Benner 20:23
So the load sharing stuff has changed there, I can still share with five people. That hasn't changed
Kevin Sayer, Dexcom CEO 20:29
now, but we are working on revisions to the share app. So stay tuned, I think will will increase that experience over the course of the next year as well.
Scott Benner 20:39
Is that to do something with the gosh, how do I say this? I pretty sure I signed an NDA. But I did a lot my daughter and I did a lot of like, feedback testing and giving a lot of examples for like, what an app should look like is that that's that process still happening.
Kevin Sayer, Dexcom CEO 20:56
We do a lot of work like that. And I really couldn't tell you what they're going to change because I haven't seen the new one. But suffice it to say we're we're committed to making that software better. That's literally the next app in the in the series of apps that we've worked on that we want to refresh. Okay, but I really don't have a timeline for it. I haven't even seen what they're gonna do. But they have talked with a lot of patients and got a lot of feedback. Well,
Scott Benner 21:20
if it's anything close to what I saw, it's very cool. So I'm, okay, two hours, I'm looking on some of the text I have here. The device, a two hour sensor warm up still exists, but it says within two hours, could it pop on sooner? Or is that just his channel
Kevin Sayer, Dexcom CEO 21:36
pop on within two hours within a minute, it's not gonna pop on in 20 or 30 minutes? It's within the bids, right around that two hour minutes?
Scott Benner 21:43
Give or take? idea? Okay. Okay. Let's see, um, do you guys try to extend to different Android phones, or are there just some that that are that are more widely used by people, and those are the ones you stick with.
Kevin Sayer, Dexcom CEO 21:59
We stick with the phones that are most widely used phones, we try and do as many of those as we can. It takes a lot of work to support all those Android phones, because Android has become a different Android for everybody. Android, Samsung, Android, LG, Android, Motorola. And so we support the ones that we can, we can't support all of them. We just don't have the engineers to do that, or the staff to do that. So we support the more widely utilized ones. When we see a new product coming out that we know is going to be popular, we quickly try and get that one approved and into our authorized phone list. But it you know it's process when you were when you were the G five.
Scott Benner 22:42
Do you use it with a phone? Yeah, I
Kevin Sayer, Dexcom CEO 22:45
always use a phone. And I don't wear g fives anymore. I was I got to use the new applicator over a year ago. And I they call me a sensor snob. I won't I won't wear the old stuff anymore. I've been wearing experimental stuff now for over a year. And it's awesome.
Scott Benner 22:59
Yeah, I think I get that has there been? You know,
Kevin Sayer, Dexcom CEO 23:05
I've seen like Bluetooth drops between my daughter's trans through a transmitter and our phone and not not a lot. But it happens, right, you'll walk away, it goes away and sometimes doesn't come back as quick. Is any of that different in the JSX. Most of the communication protocol is the same. We didn't I am getting a little technical on the Bluetooth side. So I'm not quite sure where it is with the current chip. But here's what I can tell you. We have new electronics for next generation transmitter coming that appear to have what you know less of those issues on Bluetooth is something that we evaluate regularly. And it's interesting that we all say we want to go to the phones with our devices. And if I've had one learning here at Dexcom, it's what it really means to go to the phone. All iPhones aren't the same. All Android phones aren't the same. Even all iPhones with the same iOS version don't behave the same way. And that's integrated is really led to a level of complexity our business that we did not anticipate when we started down the path. I say one of our key focuses in future engineering is better Bluetooth connectivity and more consistent communication. And I think we've got some real good ideas coming in the future on that front. This one I believe is is the same, you know, we do have the backfill feature if you walk away for 20 or 30 minutes and you come back it does backfill Oh yeah.
Scott Benner 24:37
there Yeah.
Kevin Sayer, Dexcom CEO 24:38
So that that's been good, but I you know, I there's just a lot of things about Bluetooth that you don't really understand until you put it into practical use. And it has been a great learning for our company. And and hopefully, we'll continue to do better for our patients and we will
Scott Benner 24:57
listen Can I go to cut up my lawn headphones on their noise canceling their Bluetooth, I put my phone in my left pocket, it doesn't work I put in my right pocket does work. Trust me, that doesn't make any sense. But I have gone through it enough times now to know that it's a Bluetooth, it's a limitation of Bluetooth one way or the other. It's just it just is what it is. Some quick questions for you. And then I'm going to ask some more specific stuff is that he's the same on the G six as it is on the G five.
Unknown Speaker 25:22
It is for today. Yes.
Scott Benner 25:24
Okay. So that's still something you're working on?
Kevin Sayer, Dexcom CEO 25:27
Yep. And and I would tell you again, I'm answering this. I've answered this question a couple times, too. If I got a room and a group of users in the room and asked about it, he said, I get three answers. Answer one, make it more sticky answer to make it hypoallergenic, and answer three, make it less sticky. And I'd love to be able to fix all three of those things at the same time. For right now, the adhesive is something we'll work on more going forward, we needed to get this platform out and out to patients. And that will start addressing some of the the other things after the fact. And you'll see some innovations along those lines over the next couple years from us that really enhanced this experience. And adhesive is one of the things we're testing and working on as we speak. Well,
Scott Benner 26:15
listen, I was I was thinking 15 minutes before you and I jumped on. I tried to be like thoughtful about it. Like, it's, I'm excited that things get better. Like in my mind, innovation takes you know, research, it takes development takes money, you have to have those 300 people you're talking about are bright people. They need to be compensated. And you know, I always kind of correlate it to my wife, my wife does this amazing work. And she's such a bright person who comes through every day. But if somebody didn't compensate her, Well, she'd go do it somewhere else. And so you guys are building from the ground up like this, this, you know, this machine really, and and on top of it, you've got to you've got to build employees and infrastructure and and keep moving forward and keep up and stay. You know, it's just it's a lot going on. I I always wonder if if, if people take the time to stop and think about like, what happens if a company like Dexcom just doesn't
Kevin Sayer, Dexcom CEO 27:11
know, I let me give you to give you three examples. I'm sorry to talk a little much. But we realized Tuesday afternoon, that it was 12 years to the day that we got approval for our first three day system 12 years ago to the day. And two of the guys who got that approval were in the room with me when we realized that
Scott Benner 27:35
it's gotta be overwhelming. Honestly, again, only two people were left over after 12
Unknown Speaker 27:40
years, more than two
Kevin Sayer, Dexcom CEO 27:42
years in the room, two of my senior people, our head of r&d, Jake Leach and our our VP of regulatory strategy and clinical affairs, Andy bayla. We're both here then. And remember that three day system and how far we've come. But we had and I came here in 2011. Got we had, I don't know 400 employees, we're almost we're almost at 2500 FTS right now. And and several hundred temps in our manufacturing processes. It's it's really different. It's hard. And it is an infrastructure to keep up with and to keep moving. And there are days when all of the folks who were here when we had 50, people would like to go back to the days of 50 people and their days when those who come from big companies with 10s of thousands of people would say we want more structure. Yeah. So it's a balancing act all the time. But the goal, the nice thing about Dexcom as the goal is always the same. We do one thing we make continuous glucose monitoring technology. And to improve that and get it and an innovation like just went out the door is it's really monumental for us and everybody here is is thrilled, but there's there's no no pencils down here are no fingers off the keyboard or whatever. Everybody is busy. Now that we've got to make this launch very successful.
Scott Benner 29:00
Yeah, and you listen, you've heard it from me. And you've heard it from everybody I would imagine millions of times but the things that I accomplished with my daughter's blood sugar with an A one c that has now been between five, six and six, two for four years plus four plus years. Now spectacular in Chinese food last night. She's in a restaurant right now having a waffle with my wife, you know that all this stuff, everything I do everything that we talked about on this podcast on days when you're not on talking about your stuff, or that's it. It's all based around the things that I've seen done and learned because of the Dexcom there's there's no way around it. It's that coupled with a with the her on the pod insulin pump where I can make these fine adjustments without these two devices. I'm back to a router. My daughter's a once he was eight and a half and I was killing myself to get eight and a half. And so I can tell you that in most days of our lives, we don't even really talk about diabetes that much around here. It takes up such a small portion of our day. Because of because of the work you guys are doing out there. And And not only that, by the way, but Arden comes home from school today right before you and I talk and the kits there for the demo, and I said, Oh, hey, take a look. she flips it open. And and I said, Hey, I hear the applicators. Like it just makes it like really easy. And you know, bump him nearly painless, better than this now, and she already doesn't complain about it now. And I'm showing you the flat trans, she doesn't care. She didn't care about the transmission. She said about the applicator. She goes, is it going to be easier. And I went Yeah, she was good. She picks up the the receiver which she doesn't use, she goes, this thing's really cool. And I realized it was because she's more technically based. She's a kid, like she saw the electronic II thing. And she was like, This is cool. And then Kevin, she just walked away from it. My daughter doesn't even really think of herself as having diabetes most days. And, and I can't tell you that she used to, like she used to be burdened by it, she would cry and wonder when it was going to go away. And I haven't had a conversation with her like that in years. She's like sleep over, she just made plans to go to California with a friend who doesn't know anything about diabetes, I think nothing of it plays competitive softball day long, doesn't matter. It just it it pulled our butt out of the fire the other day when she, you know, went to bed after a long day of softball, and I was positive she was going to be okay. But her blood sugar started to fall. And, you know, we were indicating it to us. We took care of it. I was able to treat the low without creating a high afterwards. I just I can't tell you I'd walk all the way out there and Huggy if I could, you know, I mean, it really is it is spectacular. And I and I know there are growing pains and other people are going to hear the 10 day, you know thing and they're going to get mad, and it might be a financial issue for them. And I even understand that.
Kevin Sayer, Dexcom CEO 31:45
I look I do too. And and I would love to, you know our goal. As I said, as I've said numerous times today one of our goals is take cost out of our device in our platform, and pass those cost improvements on to our patients over time. And I think that we'll be able to do that that the 10 day shut off from a performance standpoint, with no calibrations is extremely important. And I'll get back to what we've heard from patients we've heard, we don't want to calibrate for a very, very long time loud and clear. So by offering that feature from a scientific perspective, we kind of had to make we had to make that trade off. And I think I think patients will get there and then we'll work on the financial terms over time at one of our goals is to increase access to CGM. That's one of your goals and your podcast we know are well known We are the more access increases, the more people have access to it. I mean, it's taken us over a year to work through all the bugs with Medicare. But now Medicare patients are getting CGM on a regular basis. And that community is very happy with what they now know and what they have for their disease with so we we got that access. It's taken a while to work the bugs out. But those patients have a good experience and their economic model is one that's that's livable, a little bit different. I it's more of a subscription type model and and maybe things move in that direction. And it's easier for patients and but I understand the the problems. I mean, health insurance is tough. It really is.
Scott Benner 33:18
Okay, guys, so you know, Dexcom is sponsoring the podcast, so they get an ad, right? But this whole episodes basically telling you go get it Dexcom g sex, it's coming soon. By the way Kevin is going to tell you about when it's coming. They don't have an exact date, but he'll give me an about when it's coming at the end of the podcast. You might be saying to me right now Scott, why would I go to your link dexcom.com forward slash juice box or like in your show notes and get an Dexcom g five when I want this G six s g six sounds like the bomb diggity, I hear what you're saying. But guess what, you're not gonna get stuck with a G five, there's gonna be upgrade programs. Kevin couldn't give exact details about them. But I think you're gonna find them to be generous. In the end, there's really no reason to wait. If you listen to this podcast, you know, the amazing things that we accomplished with blood sugars, and a onesies because of the Dexcom technology. You want to get going right now. I mean, Kevin's gonna tell you later when you know when the G six comes out, and maybe it's not going to be for a few months. But why would you give up months, a fantastic there's no reason to and they don't want you to so they're going to make it so that you don't have to. So go to dexcom.com Ford slash juice box right now get started with Dexcom right away and they will transition you nice and smooth into the G six series again that show no click on that link dexcom.com forward slash juice box. It's also at Juicebox podcast.com. Before I get you back to Kevin let me just say this if you just here today for the Dexcom news, subscribe give the podcast a try. It's free. Juicebox Podcast is available on Apple podcasts, iTunes, Spotify iHeartRadio or wherever podcasts are found. You're saying there's no calibration but when might I want Want to test? I mean, are there gonna be times where because right now I've said this to you before I'm not embarrassed. I absolutely trusted Dexcom right up until I don't. And I base that on my experiences of the day like looking at a line sometimes, like a graph line stays too flat too long I get a little weary of and maybe I check then or, like, you know what I mean? Like we're about to have a big meal with a ton of carbs, I'm gonna make this giant bolus, I'll sometimes test to make sure that I'm, I'm where I think I am. But is that just literally not going to exist anymore? Or is there still going to be moments where I'm gonna want to
Kevin Sayer, Dexcom CEO 35:30
it? You know, the way the system is labeled? You're tested if your symptoms do not match the reading on the seat on the CGM. I believe that's in our literature. I said it was what g five. And so I will leave that up to you as far as when you test but you know, it's labeled, you can use it from the word go without any calibrations and or without testing. And you'll just have to run that experience on your own. And
Scott Benner 35:58
it's And so much of it really is like that. There's no at the moment in diabetes, there's just no one size fits all lightswitch answer for anything you have to you have to learn about it and figure out how to use this stuff best for yourself. I completely on
Kevin Sayer, Dexcom CEO 36:12
that. That's why we left this, this option in there, that and the fact that we'll be integrated with insulin pumps who are are probably possibly going to want a calibrations in their automated insulin delivery systems to make sure that those things behave properly, and and deliver the best outcomes for patients. So we didn't leave that feature in there. And we'll see if if people want it. Or if they don't I? I said yeah, I have not calibrated any of that I've worn I'll just leave it at that. Okay,
Scott Benner 36:43
um, Apple three, can I use the G six with the watch without the phone?
Kevin Sayer, Dexcom CEO 36:48
Not yet. Now, we have to make a couple of electronic configuration changes, we're working on those. And that will come it's not quite there. But we will get there. And we're excited for that to transmitter still last 90 days, that transmitter still a 90 day use? Yes.
Scott Benner 37:04
Right. So all right, how you know what, how about, um, I don't know a ton about this, but people I got questions from people integration with the T slim x two. And just other companies, I guess that you have, you know, I guess, on the pods doing their, their horizon is with Dexcom, that kind of stuff.
Kevin Sayer, Dexcom CEO 37:21
And an omni pod is gonna do their horizon with G six. So that will be integrated into that, with respect to tan and peaceful MX two, I believe right now, it's labeled for G five. And I believe they're predictable glucose suspendable come out at a G five product. The beauty of the tandem diesel MX two though is you can upgrade the software in that pump. So if somebody purchases that system and wants to get their own delivery device, based on the ability to work with Dexcom, when g six comes in, when tandem goes through the proper regulatory processes, you can upgrade your pump, you know, via cable and plug it into your computer, or through Bluetooth. I don't know how they connect, and you can then go to G six without having to buy a new pump. Oh, it's beautiful. Well, tandem has a really nice feature there with that and and hopefully when you know when input is ready to go, we'll be in the same place with them that these things will be upgradable as our technology continues to move on, is G six right away with Medicare Medicaid, or do you have to do something with no, we have to do some contracting. And same with the other payers. There's some payers where it flips right over there others work we have to go negotiate new contracts. And we will have to file a new agreement with Medicare and certainly probably most of the Medicaid programs. And we'll be working you can't do it till you get a device approved. Sure all those efforts will kick up shortly. Well, it's
Scott Benner 38:43
funny, there's obviously there's behind the scenes stuff when you're talking about the pumps just now and you said bow on the pod using g six. And then I think back to you saying you've been wearing g six for the last year I think oh on the pop probably had that while they're using there. I see there's stuff going on we don't know about. And let me ask you this, with no calibration coming up. And now it's here. And now you expected to get better and better. Is there a concern or world where I should be worried that if I have a G six that I won't be able to get test trips through my insurance? Well, they say but you have that? Have you guys talked about that at all?
Kevin Sayer, Dexcom CEO 39:16
I you know we haven't and I have not had that discussion with with anybody. That's an interesting question. We've always said it's our long term goal to make CGM, the standard of care for diabetes and eliminate fingerstick. So I guess our challenge is to make the device good enough. You'll never have to get them. Yeah,
Scott Benner 39:34
I think that's right. That's excellent. Okay, so let's talk about timelines. We're coming up on the amount of time I promised you. So. Now, what I've been told is, and this is very cool, because of the, you know, because of the warrior program, I guess is that Arden's going to get a G six as soon as they're available to the public at the very beginning, which we're very excited about. But when is that? Do you have any timelines at all our hopes? Well, we
Kevin Sayer, Dexcom CEO 39:58
said that we would launch later in the second Quarter, the full launch. And so that's our timeframe right now I really can't give a firm date now. Before the end of q2, we'll start shipping to people. Okay, and we would expect certainly for the last half of the year it's g six all the way I say
Scott Benner 40:17
yeah, I don't imagine that you guys have been sitting around not paying attention to
Kevin Sayer, Dexcom CEO 40:22
me Just let me say one other thing. We're gonna make it right with people. So you know, if you're on G five right now and need a new transmitter, we're not going to leave you hanging. When it comes to the G six g six, we will have G six upgrade programs in place okay. And we'll work with new patients and with existing patients, we don't want people who do not get new g five product for fear that their dollars are going to run out we will have some very good upgrade programs for patients to make sure that they they can do what they what they need to do. Okay.
Scott Benner 40:54
It'd be hated actual receiver right now, if I haven't received right now with G five. When you upgrade me to G six, do I get a new receivers same receiver still work with it, the old receiver will not work with G six,
Kevin Sayer, Dexcom CEO 41:05
there's the new receiver we launched for G five earlier. And back in 2017. That receiver can be upgraded via software update as well. And so it can be used with G six, it can be switched over. Oh, great. Okay,
Scott Benner 41:22
well, listen, I I'm not reading between the lines, you just said it like nobody's gonna get left out an island with old gear they don't want or stuck reaching, I
Kevin Sayer, Dexcom CEO 41:30
need to be careful. We're not we're not also not accepting. You know, I'm not opening the door for returns or anything. I'm just saying with the three month transmitter right, the
Unknown Speaker 41:37
next time you
Kevin Sayer, Dexcom CEO 41:38
come in, we we will and our programs will be posted on the web. As soon as we iron everything out, you guys will see. We've been very good historically about taking care of patients and making sure there's an upgrade path for in warranty patients and we do our best for out of warranty patients as well, that culture and that attitude won't change. Good.
Scott Benner 41:57
Yeah. And you've all you guys have also done a great job about getting to market faster than I've ever expected. But everything you guys have ever given us has come before I expected it to come
Unknown Speaker 42:08
well knock on wood.
Scott Benner 42:12
See how we do Don't let me down Kevin? Did I not bring up anything that you that you have on your I feel like we think we've covered I think we've covered about everything we could cover I did. So I really appreciate you doing this. And I can't wait to get the stuff in and be able to hold it and start telling people about how well it works.
Unknown Speaker 42:30
All right. Thanks for your time due to Kevin Have a great day. Bye bye.
Scott Benner 42:36
Hey, thanks so much, Kevin for coming on. Tell us about the new g six. Congratulations on the FDA approval. If you're new to the podcast, subscribe stick around. Listen, you can listen to Apple podcasts, Spotify iHeartRadio or any honestly any podcast app whichever one you love, use overcast, listening overcast. What do I carry? Listen doesn't matter to me. Hit subscribe, check us out. So a lot of great stuff coming up in the next couple of weeks. And there are 157 amazing episodes before this one. Give it a try. Be bold with insulin if you don't know what that means, find out thank you so much to Dexcom and Omni pod for sponsoring the program. Your continued loyalty humbles me. This was a bonus episode this week so there'll be another one on Tuesday. If you're enjoying the Juicebox Podcast, please leave a rating and review on iTunes. Last thing the podcast continues to grow. This is one of our best months in the history of the show. That is in large part due to you guys sharing so thank you very much for telling others about the Juicebox Podcast Please don't stop telephone
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#157 Lindsey is a Cornacopia of Emotions
Scott asks Lindsey if the idea of being cured of type 1 diabetes could sound scary...
...and a lot of other emotional stuff!
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - google play/android - iheart radio - or their favorite podcast app.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hey guys, this episode of The Juicebox Podcast is sponsored by Dexcom. Dexcom, of course, is the continuous glucose monitor that gives you a complete picture of glucose by showing you where it's going and how fast it's getting there. We're also sponsored by Omni pod the tubeless insulin pump that brings you peace of mind. With it's flexible and precise design. Simple, discreet. The waterproof on the pod is the way to go. If you want a tubeless insulin pump, you definitely want to go to my Omni pod.com forward slash juice box. And don't forget Dexcom dexcom.com forward slash juice box if you can't remember those, there's links in your show notes and at Juicebox podcast.com. Welcome to Episode 158 157 157 Welcome to Episode 157 of the Juicebox Podcast. Today's episode is called Lindsey is a cornucopia of emotions. I reached out on Facebook, I think, looking for the answer to a really kind of strange question that popped into my head. And Lindsay said I can answer that question. Then when she came on, she shared stuff that was unexpected. I'm going to say unexpected, as was the entire conversation. Just really great. And it picked up as it when it was like a rock rolling downhill. It started off and I was like, Oh, this is gonna be good. And then by the time it was over, I was like, Ah, what a great ride. Alright, people listen, what am I gonna say here? Nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before being bold with insulin. By the way, if you're a baseball fan, there is some quality Basal story in the beginning of this episode. has to try to remember the the genesis of this exactly. So I'm online and I see somebody say something about being scared of something going away. And I have this immediate thought, is this person saying that they're, you know, what, what would they do if diabetes went away? And I started having this whole daydream about like, I wonder if that would how that would feel to people. And you assume most people will just be like, this is fantastic. And but I said, but somebody must have had diabetes for so long that they would feel like a little piece of them is gone, or some of their identity or something like that. And by the way, I went back and re read what the person wrote. I just misread them.
Lindsay 2:26
You see what you want to see?
Scott Benner 2:28
Well, at the very least, what ended up happening was I thought this would be great. I wonder if there's anybody It feels like this. And I went on Facebook, and I said, Does anybody think it would be scary to be cured? And there were two people, or a lot of voices who were like, no way. But there were two people who said, I can see what you're saying. And you were one of them. So I really appreciate you coming on and doing this. Thank you so much.
Lindsay 2:49
It. I mean, I do I have thought about this before, you know meeting people who have had pancreas transplants, which I know is not a cure, but it does. You know, it does make the diabetes part pretty much go away. Right, right, in some cases, and just thinking what would that be like if I could wake up whenever I wanted? Yeah. And yeah, it is terrifying to completely be able to change the way you live, like every moment of your life might be different.
Scott Benner 3:23
Yeah, no, it just it's so so we'll start right away at the beginning. How old were you when you were diagnosed?
Lindsay 3:30
I was almost 12 it was less than a month to my 12th birthday.
Scott Benner 3:34
So you're a good long time into having diabetes. Your I don't know. 18 years. That was quick math as I am I right?
Lindsay 3:41
Yeah, it's about 18 years. And but you know, being diagnosed at 12 is a lot different than having it as a small child, like I never had my parents take care of it for me. Like I, I took over myself as soon as we left the hospital. So there's a lot of experiences I don't understand. And volunteering recently, I started volunteering with jdrf chapter here. And I didn't realize how much you know, the disease affected parents. I know that's really really ridiculous to say out loud. But you know, I only had my experience I never even considered that. You know, when children are young, it's the parents have the disease too.
Scott Benner 4:25
Right? Yeah, it is. It's funny because you're you're seeing what what you're talking about right now is super interesting, right? Because you're diagnosed such a long time ago not to try to make you feel old. But but but but so long ago that it's really before any semblance idea of like glucose monitoring, or even people who are testing as frequently as people test nowadays who don't have glucose monitors, right? So you were more in this like space of this is how much insulin you take at this time. Then you eat and then you take insulin again, is that about how your Tell me a little bit about your day when you were 12 years old? You're like, I'm taking care of my diabetes. Now what did that mean?
Lindsay 5:09
Yeah, there was no, there wasn't even a sliding scale, or I don't even remember what they called it. Now. I had to eat this many carbs at lunch. I could not have more or less because I was taking insulin for that many carbs. I couldn't have an extra cookie and take a little more insulin that was not part of the regimen. And that was very restricting. Yeah, and not fun. Especially like I said, it was a month before my birthday. So my first diabetic birthday was very unhappy.
Scott Benner 5:43
Because because it was they restricted foods from you, right? There were certain things they would not let you have.
Lindsay 5:50
Well, I could only have, you know, 60 carbs per meal. 15 carbs per snack. So you know, cake. I could have one piece of cake at my mealtime. And that would be all the food that I could have for the rest of the day. Yeah, so that they didn't say you can't have this candy bar. But, you know, I could only have 60 carbs. That's not a lot of carbs.
Scott Benner 6:14
Right? Oh, so you were so you had this you had a number you're eating to a number? Yes, that's that caused you any kind of weird feelings about food?
Lindsay 6:23
I definitely have some, some eating issues. And some binge eating issues, which may or may not be related to the diabetes, probably, you know, I can only have this many. And I would sneak candy a lot as a kid and gotten a lot of trouble. Because it was against the rules. That mean, how do you explain to this kid that these other roles are going to die? Like
Scott Benner 6:52
and so that is it really. So when you say that against the rules, it really was the idea of like, there's a set written rule that came from a doctor and we're following it, it wasn't so much about your health, like the way you think about your management now I would imagine is more about like, keeping your blood sugar in a range. Try not to spike or fall too far and things like that. But those were none of those were considerations. The rules were just, this is how much food you can eat. This is how much insulin we give you.
Lindsay 7:17
Yes, that's exactly it. Wow. It was like that for years.
Scott Benner 7:21
That's just 18 years ago, which is not that long. When At what point? in your in your life? Does that start transitioning away from that? Like, who's the first doctor? Are you the first person who says this is not tenable? We can't do this.
Lindsay 7:35
You know, I did not start being that honest with my doctor until about five years ago. Okay, it was more of a yes, that's exactly what I'm doing and lying, which is not how you're supposed to handle this disease at all, like doctors are now my partners, and I'm honest with what I can and can't handle and they work with me. And it's, it's wonderful. But as a child, you know, I lied.
Scott Benner 8:01
And even in your mid 20s, you just would go in that room and just be like, everything's right as rain, man. Don't worry about it. Yes. Did your agency reflect that?
Lindsay 8:11
Yes. Well, it wasn't, it was bad. It was about an I was around 8.5 to a nine, all of those years, I was lying. And it It showed when I changed my attitude and my behavior. When I wasn't just trying to ignore the disease. Like when I actually started taking care of myself, it reflected immediately,
Scott Benner 8:34
okay. And then I'm assuming you didn't go into the doctor's office and say, Hey, not for nothing. But I've been lying to you for like the past 12 or 13 years, and I've decided not to do that anymore. And so when you made the change on your end, and the agency started dropping, I'm a doctor commented on that.
Lindsay 8:55
Oh, no, I've straight up told him. I've been lying to you. I want to take this seriously. Now. These are the steps I want to take. What are your thoughts? I were you. I was very honest with him.
Scott Benner 9:06
Wow, good for you. Now what do you what can you share with me? What brought you to that? Like what made you say, I'm, I'm done with it this way, I'm gonna do it better.
Lindsay 9:17
Um, my, my parents had gotten very overweight, and it was starting to affect their daily life and their physical abilities. And I just I looked at them and said, I can't be like that I need to take things more seriously. And so that's what changed my mind and I began actually trying and understanding what I was doing. And I've turned it all around. Things are great, good for you. And being honest with my doctor was really, I joined a support group for chronic conditions. And they had a class about communicating with your healthcare team and They really push that you have to be honest, if you're not going to take the medication, don't tell them you're taking it because that will affect their judgments. So I'm just, I mean, if I had hadn't told them that I've been lying, and they saw this change, they'd be checking for what could possibly have caused this. Like, they might think something else was happening.
Scott Benner 10:20
Yeah, it's such a good point. If you're, if, if you're not being clear with them, then they don't have all the pieces, then they start trying to put a puzzle together without all the pieces, and then they're gonna end up doing a lot of things that that aren't good for you trying to do something good for you. And exactly, that's a danger. You don't want. So okay, so now I have a lot of questions. Well, eventually, we'll get to why you're on this. So why. So you said your parents had had a way to increase that scared you? Were you also having a weight increase as a family? Were you all trending in one way? Or did you just see it happen to them and think I don't want that to be me.
Lindsay 10:57
We were all trending in that way. my eating habits were taking after theirs. And yeah, we we were all overweight. And my parents have taken it more seriously. And they're losing weight as well. And I've learned to eat foods that aren't beige. I spent a year vegan that has really educated me about nutrition and vitamins and whatnot. And
Scott Benner 11:24
what that means, so you won't eat foods that are beige, Tommy?
Lindsay 11:29
Well, I was eating exclusively foods that were beige, okay, no fried foods, pasta. Check in just, you know, the stuff that tastes really good, but doesn't do much for your body.
Scott Benner 11:42
And that's so interesting. I never even I never even considered it like that. But that's amazing. Alright, so because I've seen a picture of you, and you seem like a average looking body type, like I wouldn't look at you and go, well, that girl looks like she had been overweight at some point. So you, you're in a good place. Now, as far as you're concerned, I would imagine I'm in
Lindsay 12:03
a better place. I actually, last year, I had another autoimmune disorder flare up, good for you.
Scott Benner 12:13
And you get an autoimmune disease and you get an autoimmune disease. Like I got one already. Thank you. But though what happened?
Lindsay 12:21
So actually, about four years ago, my thyroid started becoming overactive. And we were treating it and eventually it went away. But last year, it came back again. And we had to kill it. The radioactive iodine treatment. So my thyroid was overactive. And then during the treatment, it's really overactive. And I wasn't allowed to exercise at all. Like, I couldn't even take leisurely walks. Because if you raise your heart rate too high, you could risk permanent damage. Wow. Yeah. So I actually had to let go of my exercise regimen for six months during the treatment, and I kind of lost a lot of progress. So I'm, I have goals that I'm reaching for, and I'm able to start working towards them again. But I'm still much better than I was when I started. And I can see the goals I will get there.
Scott Benner 13:18
And I'm thinking most people are like I wish a doctor would tell me I couldn't exercise like how great would that be if my doctor was like listen to my medical advice that you should not exercise? Well, I'm sorry that you're that are the things are piling up on upon things that sucks. And, you know, I don't I don't like to hear that at all. Obviously, and I'm sure you didn't either, but, but still some to the weight, I just want to go for a minute. So like to you the diabetes. It's interesting, because I don't think of a weight and diabetes as being I don't know if I'm gonna get lost in a thought here. So bear with me for a second. But when I think about the health that revolves around diabetes, I just think about it as blood sugar's in a range that we've decided on and trying not to peek too far out of that range for too long and not then and below that range for too long. But I'm wondering as you're speaking, if I only think about that aspect of it, because my daughter's in is like a fifth child. Like, I wonder if I don't think about the rest of it. Because it's not an issue for me. Do you? Do you know what I mean? Like, I bet you I'm now thinking that if my daughter's weight was in some way, a health concern that I would tie that in my mind back to the diabetes
Lindsay 14:36
and and you're forced to, as well because when you're over weight, your insulin needs are different than fit people and as you're losing weight and exercising more every day, you have no idea what your insulin sensitivity is going to be. Oh, okay. Oh, so Okay, yeah, I have to adjust my temporary basals every single day depending on my activity level, and If my weight is trending downwards or plateauing, there's so much to take into consideration because I let it get so far out of hand. And now I'm trying to get back.
Scott Benner 15:11
I don't make sense. I just it just doesn't didn't strike me initially like that. But that makes total sense. Okay, so you go to your doctor, I am interested, you go to your doctor and tell him, I've been lying to you for ever about how I take care of myself. And what was the reaction back to the doctor like not? I don't know if I'm more interested in. Like, I guess I want to hear first, like, could you tell on a human level? Was it like, was the doctor like, Oh, my God, I just wasted my time here. Do you know what I mean? Like, like, What? What was their their reaction?
Lindsay 15:45
Well, my doctor is not a very expressive man. He's a little bit cold. And I love him. He's great. But he's not easy to read, though. The last few years before I told him. You could see it in his face. He knew I was lying. He knew the numbers I was showing him weren't real. He he knew all I wanted was my insulin prescription. And you could tell Yeah, and so when I told him, there wasn't much of a reaction, but in the following appointments, you could tell that he felt differently, like he cares more about my treatment, because I do, like we communicate. And we have conversations and it's not checking checkboxes off his list. His attitude is a little warmer. And it our relationship has changed.
Scott Benner 16:43
The Omni pod tubeless insulin pump is waterproof, even where the shower the bathtub or the swimming pool. The only pot is also discrete. It's so tiny and lightweight that you can wear it anywhere that you would inject and you can dress however you want. No one would ever know you're wearing it unless you want them to. Now that's simple, isn't it? an insulin pump with no tubes. That's discrete, flexible, waterproof. The only pot even inserts on its own. Well, automatically, like it doesn't actually. Like it doesn't come to life and walk across the room and like put itself on you. But you know, you, you put the pot on, and then just push a button and then it automatically inserts it's hands free. With just a simple push of a button. You're wearing the Omni pod and it is delivering your insulin. You could even sleep in tomorrow because you're not on injections anymore. You don't have to wake up to get your slow acting insulin going. Oh, that sounds good. I know. You know that sounds good. Let me tell you some real world stuff about the alliott. Just last weekend Arden was in an all day softball tournament was indoors because the weather around here is not great yet. So she was across this field in this bubble thing where you're on the pod you know, we kept her blood sugar around at five through three softball games spread out over eight hours, little bumps and nudges events on throughout the day, we used her basal insulin increases and decreases to manipulate her blood sugar and keep it where we wanted it. She had a big lunch we both weren't no problem. everything done right through the Omni pod. Sally pod was out of her way, no problem she was running around hitting a ball throwing a ball sliding diving all over the place never an issue. You can get a free no obligation demo of Valley pod today by going to Miami pod.com. forward slash juicebox. or by clicking on the links in the show notes. So if I'm right, what you're saying is that he knew, first of all, you were involved in one of the things in life that scare me the most like there's nothing to me more frightening in interpersonal relationship when both people are lying. And both people are aware they're lying. That seems like such an incredible waste of time to me. Like Like, that's the and I don't mean that harshly towards your situation. I'm talking about the bigger and in life in general. Like there's that I can think of almost nothing worse than me, taking the time to make up a story to tell you and you taking the time to pretend you believe it. It's just like, I'm like, wow, we shouldn't be talking to each other.
Lindsay 19:08
I agree. And and it was a waste of our time. But I needed that prescription I couldn't afford insulin without Well, sure.
Scott Benner 19:15
Yeah. And the rest of what I was gonna say is that he he's in this situation where he's a doctor, like he is bound to give you this care. And so he can only do what he can do, I guess like, I guess in his mind, if you're not going to be honest, he's waiting for you to be honest. And, and at some point, it sounds like it probably deadened him a little bit when you came in, because he was sort of like, Look, I know this girl's not telling me the truth. But I'm not her dad. I'm her doctor. You know, I'm not I'm not her conscience. I'm her doctor. So I'll do the best I can do for the information she's going to give me what do you think would have been valuable? Like, is there something he could have done that could have sped up this process? Or do you think you just needed to come to this on your own?
Lindsay 19:57
I believe that people have to want it. I don't there's anything you can say, you know, to lots of people who are choosing to hurt themselves. I don't think you can say things to them. I wish it was as easy as saying words. But they have to want it.
Scott Benner 20:15
Yeah, he couldn't want it. He couldn't have said you like, hey, I need you to go see a therapist or something? Or do you think any of that would have been valuable for you?
Lindsay 20:22
I think I would have resented him greatly if he suggested that I needed therapy, which I we probably all do.
Scott Benner 20:29
Sure. Sorry. I should be there right now. And so? Well, um, so you said something just now that made me I want to ask if Do you think looking back? Were you trying to hurt yourself in some way? Or was it just an overall self esteem issue? Or were you mad about having diabetes? Or do you know what
Lindsay 20:49
i was avoiding dealing with it? I didn't want the disease. I didn't want to think about it. I didn't want to put the effort into maintaining it. Because I didn't want it. No one wants it. No.
Scott Benner 21:01
Yeah. Right. But no one wants it. But your this was your reaction to not wanting it? And did you feel that way back when you were younger? And you were diagnosed? Or did this happen to you as you grow older?
Lindsay 21:12
No, the whole time? I acted this way. For God, what would that be, like? 1012 years now? That was a long time that I just didn't care didn't want it did the bare minimum to feel good,
Scott Benner 21:28
right? And so you weren't even considering your health? You were just like, what gets me to where I can do the things I want to do today without being in pain or sick? Or that or that kind of
Lindsay 21:39
exactly. Wow. Okay. And I did keep myself out of the hospital. During the thyroid stuff. It was a little more difficult. But I stayed out of the hospital I, I kept myself feeling, you know, using the bare minimum amount of effort. I kept myself good. And that's something.
Scott Benner 21:58
Wow. And so not only is this happening to you, but you're well aware that it's going on, it's not like, it's not like you're having some sort of an odd reaction that you don't understand. You're conscious of what's happening. Like that's even more.
Lindsay 22:13
That's terrifying. Yeah. Back on it. Yeah, I
Scott Benner 22:15
guess. So. Like I didn't, I searched for an adjective just there. And I didn't know where to go to be perfectly honest with I couldn't say if it is, on my end, if it's interesting, or terrifying, or exactly what it is. It's that the idea that, that you were you were not just doing these things, but you were aware that you were doing them. And you had a line that you would draw on for like, well, as long as I don't go past this. I'm okay with this. Did you think while you were doing it, did you think you were limiting the distance that your life would travel while you were doing it?
Lindsay 22:46
I honestly even even now, with me caring, there are worse things to me than death. And I know that's really more of it. And I don't know, if you want to go there not at
Scott Benner 23:01
all. What's something that's worse than that? Now, I've been married for 21 years. So you're gonna have a hard time shock me, but go ahead, what's worse than what's worse than
Lindsay 23:10
getting another disease,
Scott Benner 23:12
something else to deal with, and not
Lindsay 23:15
just just more things that I have to struggle with, and more things that I have to maintain? Like, death will be so much easier than having another autoimmune disease?
Scott Benner 23:27
And so and so I want to I want to sort of back up for a second so that you can do you feel in any way this is completely This is not even why we had lenzi on the podcast, but it's doing a great job nonetheless. Do you feel? Are you a depressed person?
Lindsay 23:42
I have had depression. I am not now and I do sometimes wonder if my thoughts are dangerous, or if I'm just being realistic, and I have a different experience in life than other people because I am not depressed now. I feel fantastic. I am happier than I have ever been. I feel great. But I mean, just being honest, like death would be a nice relief. You know how many times I'd have to stab myself if I were dead. Zero.
Scott Benner 24:16
Now, now, okay, I like where we're going with this. So I so I feel like you're talking about this in a more of a kind of like in your head theoretical way. And and not like, Hey, I'm thinking that when the podcast is over, I'm gonna go hop out a window, you know, like and so, so I'm really it's I think it's cool to talk about because I get what you're saying like if you're being there is a point where something hits you, you know, you listen, you could be the happiest, most fulfilled, you know, joyous person in the world. And if I start waterboarding you for 15 years, you'll probably be like, you know what, I give up, it's over. Let it be like, like, you know, there's everyone's got a limit to how much they can accept before they just say I don't I don't have any more stretch. I can't I can't bend anymore. And then I think that, you know, some people would hear that and think, well, then you have to find a way to deal with it, which is, I think what you've done, I think that you've dealt with it by saying to yourself, look, I'm going to do the best I can. I'm going to be as healthy as I possibly can be. But I'm not going to delude myself. I've lived a part of life that some people don't get to live. And I can tell you that there are worse things than dying. Like, I mean, am I I'm reading you're pretty well.
Lindsay 25:29
Yeah. And the last 18 years might not have happened. Like, I was diagnosed with something that would have killed me 100 years ago. So I'm, I just want to keep doing what I'm doing. Because I can, like, this is great.
Scott Benner 25:47
You feel like you're in bonus time the whole time.
Lindsay 25:49
Yes, yeah. And that is a gift. I mean, death might be a gift as well. But, you know, having all this technology that allows me to, you know, have dogs, you know, be alive and experience the things I'm experiencing. It's great. It's funny, I
Scott Benner 26:05
hope people can hear through because you if you don't if you're not taking you from the right, perspective, you sound like you're saying two conflicting things. But you're not. It's, it's, it's pretty, it's pretty, I think you're fairly well realized, over over this, I think your path has led you to this ability to see sort of all angles of this idea, like you're thrilled to be alive. But you can also think you can also think about the rest of it. So I'm going to take a drink Hold on a second.
Lindsay 26:35
Yes, I don't let you know the fear of dying, you know, limit, the things I experienced, like, Oh, I can't do that. Because of my blood sugar goes over a certain number and limiting the number of days here, I'm not going to live that way.
Scott Benner 26:49
I see. And and, and so but now you've seen so your weight was was an impetus for you to think about your diabetes in a different way. You're thinking about your diabetes in a different way. Now you've tried obviously a lot different things tried to eating differently. Exercise the the thyroid thing got in the way the exercise. Yeah, what do you what are you doing right now you do have an insulin pump? Do you have a glucose monitor? How do you manage things today?
Lindsay 27:13
I have the T slim g four and Dexcom. And it has been lovely.
Scott Benner 27:21
Do you think if somebody puts those tools in your hand when you're 12? Do you think you're sitting at a different spot right now.
Lindsay 27:29
Now I got an insulin pump when I was 14. And it did not change my habits at all. It just made it easier for me to be a little bit better. You know, I could take insulin during class or, and the middle of the night and not be inconvenienced. But if I had been given a CGM instead of the insulin pump, when I was 14, I think my life would be a lot different.
Scott Benner 27:56
See where the awareness of mania was actually happening, seeing
Lindsay 28:00
the immediate consequences of some of my choices have has changed a lot of my actions.
Scott Benner 28:08
So would you say then, that your weight gain was sort of your first CGM, like it was the first time you were able to see when I do a B happens, like that was the first time B was visual to you and like available for you to absorb? Does that make sense? Or am I taking that wrong? Like,
Lindsay 28:26
it makes sense, but I think that the weight gain was more of a vanity check. And then seeing my parents not be able to do just basic tasks made me that sanity check over to a health check. And the diabetes wasn't really factored into that once
Scott Benner 28:48
he was like, no one's dying, staying alive and not being able to walk up the steps, please.
Unknown Speaker 28:52
Softly Yeah, that's
Scott Benner 28:53
kind of what hit you. Okay. All right. Because Because it's, you know, sometimes you think something has to happen, so that you can understand, you know, how your actions affect things further. And that's what the that's what one of the things that CGM is, is great for is it and it's why, you know, I was able to another lot of other people are able to make, like better dosing decisions, because you can see, like, wow, I did this right here. And then this happened. And, you know, if I would have just maybe done it sooner, or more or heavier, or lighter, or whatever, like, like that, I can see how that would have changed the direction of my, you know, you think of it as that graph line, but it's really the direction of your, of your, of your immediate future. You know, I mean, like, if my budget would be higher low, am I gonna feel good? Or am I not that kind of stuff, and
Lindsay 29:37
it's really affected exercise as well. Like, there are days where I look at that graph, and I'm like, I really need to go to the gym. Tomorrow is gonna suck if I don't go to the gym today, and that's why I go
Scott Benner 29:51
because tell people why then I elaborate on that if
Lindsay 29:54
you would. Um, I mean, if I exercise my insulin sensitivity is different. And if I spend the day where I'm like at 200, and I take insulin and it's not budging, and it's not budging. I'm like, you know what, I need to bump up my sensitivity. So I go to the gym, I do my hit workout for 30 minutes, and then the whole next 24 hours is much easier to handle.
Scott Benner 30:22
Okay, so so not that we don't know that exercise is, you know, really impactful. Like, there's there used to be that the Big Blue tests where you went out the exercise for 15 minutes, you work on your blood sugar, and to show people that, like a 160 blood sugar could become like a 110 blood sugar just from going for a walk for for a couple of minutes that how important being active is to how your insulin works for you. And now
Lindsay 30:48
that's that's an interesting example. Because my body doesn't work that way.
Scott Benner 30:53
And I do no other IV. Isn't your great because you're gonna sit the next thing I was good. I shouldn't talk good.
Lindsay 31:00
Yeah, my body doesn't work that way when I'm exercising, you know, unless I took a huge bolus right before it. My blood sugar does not move while I'm active. It stays perfectly stable, which is scary, but amazing.
Scott Benner 31:16
How about when you're when you're done without in somewhat at fault later?
Lindsay 31:21
Yeah, a couple later, a couple hours later, my insulin sensitivity changes and it starts to drop. And I'm sorry, my dog has just came in. And I don't know where that came from.
Scott Benner 31:30
That's fine. It's usually my dog. So don't worry about it.
Lindsay 31:35
Yeah, a couple hours later, it'll start to affect me. And then the whole next day, my insulin sensitivities better, huh? That's right. Every body is different. But you know, you can follow advice. You can talk to people in support groups, but you have to remember that every body is different. Yeah.
Scott Benner 31:52
No, I, my daughter's been in this in this weird space for about the last six weeks now. Where her insulin needs are exactly the way they've always been, you know, from the time she wakes up to all through the day, everything happens exactly the way I expect the bazel rates are the way I expect them to be bolusing for foods ya expect to be. Then all of a sudden at night, around 10 o'clock at night. It's she still needs the same bait bolus if she was going to eat, but her bazel needs are almost non existent into like four o'clock in the morning. And I know that's gonna stop at some point soon. And I but I for the life of me can't figure out what it is. But it's been a there's been a number of long nights, you know, turning insulin down, you know, keeping it down, not wanting to keep it down so long that it jumps back up. So it's trying to stay aware, you know, a couple too many juice boxes to the point where she was like, I don't want to drink a juice box. I was like, Nah, I gotcha. I don't I don't blame you. But it's weird. Because right before that, nothing was like that. And soon enough whenever that soon enough, is it won't be like that again. And you know, it's and then somebody you could tell that story to somebody else who might just be like, That's never happened to me. I've no idea what you're talking about. Like, it's it's really interesting. So, okay, so 35 minutes into it. The reason Lindsey came on the podcast. Sorry, I know you're gonna be so interesting. So I put this thing out on the I feel like I feel like I'm two days ago, I put this thing on the internet. I was like, hey, if you were to get cured, does anyone see that as being frightening in some way or a loss or something like that? And you came right back? And you said yes. And so I was wondering what you meant by that? cliffhanger. Okay. All right. Listen, let's keep talking about the softball game from last weekend. Arden's wearing her on the pod but she's also wearing a Dexcom g five continuous glucose monitor. We can see her blood sugar, what it's doing, how fast it's doing it what direction it's going. That's where we get the indication for Hey, Arden, we need a Temp Basal decrease 50% for an hour, or Hey, Arden we do Bolus here when we got to art and softball game her blood sugar was so stable at 80 and then it tried to go up. I don't know if the adrenaline got ahold of her what happened. But I was able to aggressively bolus, stop a spike and get it right back where I wanted to because I could see her blood sugar on her Dexcom. Now how can I see that if she was so far away? Well Dexcom has a share feature. So Arden's carrying an iPhone with her that has the Dexcom share app on it, and I'm carrying an iPhone with the Dexcom follow up on it. It works with Android too, but I have an iPhone. So I'm seeing Arden's blood sugar as it's happening on my phone. That's that simple. A quick text message, hey, do this table is that a bang, bang, bet whatever doesn't matter. It's so simple, but it doesn't just work at a softball game. It works while they're sleeping over at a friend's house. It works while they're at school. It works while they're halfway across the country. If you're an adult living with Type One Diabetes, it works while you're at the office or at the gym or on vacation or on a date or sitting at home on your sofa. Knowing what direction your blood sugar is moving and how fast it's going in that direction is great and you know what? You don't even have to pay it. attention to it. Because you can set rise and fall alerts, you can set thresholds, you can tell the Dexcom when you want to know what your blood sugar is, you can personalize it any way you want. Please go to dexcom.com Ford slash juice box where the link in your show notes to find out more.
Lindsay 35:17
I mean, there are a few reasons I'd be scared. But the biggest one, this goes back to the thyroid problem I had where it just kind of went away for a few years. Every time my heart started to flutter, I was scared the thyroid was back. Like, every time I felt a little weird. And I didn't know why. I just knew I was sick. And I I feel like if my diabetes were cured, you know, I wouldn't wear my continuous glucose monitor any to any all the time anymore. And every time I felt a little bit of adrenaline, I'd be worried my blood sugar as well. Every time I felt a little groggy and tired. I'd be like my blood sugar is high. It's back. It's back. I'm sick again. I need to do something right now.
Scott Benner 36:06
Oh my gosh. So your urine, your Oh, that's really so interesting. So when I said hey, would anybody think it would be scary not to have diabetes go away. It's scary to you. Almost in the way of a heart attack survivor has that constant fear forever? Like I'm I'm going to have another heart attack at some point or somebody who's had cancer. So you know, how do I live? Not wondering if it's going to come back tomorrow. So you would almost prefer to have Type One Diabetes than to live. Knowing what it was, what it how it impacted your life and worried constantly it was going to come back again.
Lindsay 36:42
Yeah. Wow. Because I mean, at least I know. I would prefer better technology to take care of it. But, you know, at least I know what my blood sugar is at every moment. I know. What's probably what's going to happen. And I'm not sitting there wondering. Like if I went on a roller coaster when I got off? Am I gonna know that that everyone else is feeling that way? Or am I feeling a little bit different? And I need to be worried? Wow, let's
Scott Benner 37:11
see you are a cornucopia of feelings. I did not. I didn't by the way. That's the episode title cornucopia feelings, or Lindsay's a cornucopia face, we'll see how it fits in the title box. But but but seriously, like, I'm so thrilled you came on because I just thought, I have to admit, like, when someone comes on I sort of in my own mind, everyone who's ever been on the podcast can tell you and you can attest to this. We do literally no preparation beforehand. I don't know anything about you when this starts, because I really want us to have this conversation. But in my mind, you know how like, you hear someone on the radio and they seem impressed. Like that's not what I thought they look like. It's so I when you told me you would be scared if your diabetes went away. I just extrapolated out a completely different story than the one you just told. Which so you really took me by surprise because I expected you to say that it's been such a big part of my life. You know, maybe I wouldn't know who I was without it or say something like that. But you really you showed a different level. Yeah.
Lindsay 38:11
Like it is a part of my identity. I do have a big tattoo on my forearm for a medical alert. Mm hmm you know it and you know I spend my time volunteering and educating people around me it is a part of who I am but
Unknown Speaker 38:24
I stuff you get a job
Lindsay 38:25
that I can give up
Scott Benner 38:27
right right that stuff you could eventually adjust to but you don't think you'd ever be able to adjust to the just the looming nausea that you would feel that it was today was the day it was coming back.
Lindsay 38:37
Yeah, I would probably test myself all the time. I I would be very worried and it would probably get better every year but I don't think I would ever not have a glucose meter in the house just to comfort myself
Scott Benner 38:56
You make I'm going to draw the oddest parallel here but you just made me think of like those World War One World War two movies where the pilots have to go they crash into the ocean then they're alive and when I see them in the in the little plastic boat or paddling I think in my I think in their mind they must be thinking of sharks about the bite made by sharks about the bite make a shark so because I would just think that rental the shark bit me like me like I just like that is that is sort of the feeling like how do you when you know it's there, and you know how dangerous it is? And you know how what it could do to you when it gets to you? And you imagine that it is just a matter of time before it happens. How do you it's interesting that so but you don't think about that that way? No, like you're not sitting around every day.
Lindsay 39:44
Yeah, it happens to everyone. Eventually in a million different ways.
Scott Benner 39:48
Yeah. Lindsay you're very interesting.
Lindsay 39:52
Is that codeword for crazy?
Scott Benner 39:53
I don't know what it is that you are you do you with somebody or Because if you're not, this might be why
Lindsay 40:03
my boyfriend lives with me and he helps take care of me in the middle of the night. In fact, I told him about the new bolusing from the phone patent that I heard about tandem. And he's like, if I could bolus you from my phone, that would have really helped me
Scott Benner 40:18
change the world. Well, yeah, well, so and i joking a little bit, I don't think you're crazy. I just think you're, I think that you're considering more than a lot of people consider sometimes you don't, I mean, like, there's, there's, there's ways to get through the day, and then there's ways to realize that you know, everything around you really, and there's a fine line, like between being paranoid and being just aware that it is true, like I, I have a very big old oak tree in front of our house. And it is not lost on me that if it fell, it would just kill us all, like, you know, and and so my brain says to me, well, that thing's been there for 70 years. It's not gonna follow her. And, and I go, Okay, and then I never think about it again. But every once in a while I walk outside and I go, wonder which one of the kids would take it the worst, if that happened in the middle of the night. You know, like, it would be the girl by the way, cuz her rooms more to the corner. But but the but the point is that, you know, a healthy mind doesn't spend time thinking about that constantly. And yours doesn't either, because you're so blogged about the end of your life, you're just like, that's fine. I'm good. But but but to think that that was the concern that popped into your head, if you took my diabetes away today, I would just constantly be scared, it would come back. I think what that shows more than anything, is the impact of the diabetes has had on your life.
Lindsay 41:39
Yeah, and just how much of every aspect of my life is affected by it?
Scott Benner 41:45
Yeah, you really gave me You're just giving me a lot to think about because you You sound like, you sound like you were, you know, abducted when you were 12. And you've been kept in a dark room for the last 18 years. And now you're out. And all you can probably think about is what if someone else grabs me and sticks me back in that room? Again? It just, yeah. And I think it's probably an apt comparison that diabetes does. You know, we all do a really good job, everybody does a really good job of living the best they can every day with type one, right? But yeah, but you can't. And the way you do that is by not thinking about the parts of it, that it's sort of taken. But at the same time, I put you in this sort of like, fantasy world, right, as you think about it. And that's what you thought about.
Lindsay 42:36
I talked to a lot of people, and I know you have experienced this, where they hear the word diabetes, and they want to tell you about everyone they've ever known, who's had diabetes. And I get a lot of, Oh, yeah, I knew someone that had type one diabetes, but they didn't take care of themselves. And I find myself like defending the stranger, who they're insulting behind their back. Like, it's really hard. Like, you don't understand when you have to think about it every moment of every day. Sometimes you just want a break. And you can't take it. Yeah. And you so you might see them behaving a certain way and think, oh, they don't care about themselves. Oh, they're a bad diabetic? No, they're trying their hardest. It's just way harder than you think. Yeah, every day in and out.
Scott Benner 43:31
I remember it's funny, because we're recording this on the weekend of the hurricane in Texas. And because I don't know when this will go up. So that's in towards the end of August, if you're listening, and you're wondering what it was. And what you just said made me think about a conversation I had with a neighbor going all the way back to Katrina.
Lindsay 43:50
Before before he's got
Unknown Speaker 43:51
good.
Lindsay 43:52
I was actually also in Katrina, my cornucopia of feelings, and lost everything.
Scott Benner 43:59
Of course you are. How would you not have been? Did did a piece of debris happen to hit you in the thyroid during that storm? Well, so Okay, hold on a second. We might get back to that. But But I'm talking to a neighbor, right? Who makes this statement that I found just insane that why don't they just leave? And I said, Well, hey, what if they can't afford to leave? And he's like, who couldn't afford to leave? I'm like, well try to imagine being a person who doesn't have enough money to wait three days notice leave a place where they know is going to be swept over by an ocean basically. And like I said, try imagine being that broke, and then he goes into Wolf, you'll work harder. I'm like, No, no, I'm like, he's like, I worked hard. And I said to him, like, Did you go to college? St. Isaac, did your parents pay for it as well? Yeah, I mean, I'm like, I'm like so you're proud of the hard work you put in after someone else paid to pretend you to college? I was like, what does that mean? Even like, you know, because well, you know, other people. could do that. And I was like, you know, some people live in generational systemic poverty and lack of education, I said, you might be looking at a person who hasn't been in a family structure that's made more than $12,000 a year for 80 years, and hasn't completed any education of any meaningful thing for 50 years. And if that's the case, how are you telling them? All you need to do is go out into this world and figure it out and do it the way I did. I said, they don't have any of the tools that you have. And he couldn't see that. Because I think that if he imagined that, then he'd realize how random the success in his life was, and how little it had to do with his hard work, and how much it had to do with just the random goodness of how his life fell into place. And it's not lost on me that while you're talking, and I'm thinking, wow, I'm so lucky to this point that my daughter is not having the issues that you had. She could you know, I mean, there's that I'm not religious enough to know the saying, but it's like they're, for the grace of God go by right go or whatever, there's probably a V in there or something like that, because it's more religious. But, but that idea that had just a couple of things fallen differently from a, my reality could easily be your reality, and vice versa. And then that's what you're making me think of,
Lindsay 46:19
we can only know our own experiences and trying to judge people based on our experiences is not it's a waste to them.
Scott Benner 46:26
Yeah, it's unfair to them, but it's also just a waste of your time. And it's just an exercise in you trying to feel better about yourself. You know, like every It is, it is a very common thing for people to just try to find somebody doing worse than them. So they can say, Oh, look at these people. What a mess, not like me, like how, like I have it together.
Lindsay 46:46
Exactly. And I I feel like these people are trying to compliment me by think that, you know, they were a bad diabetic. They're
Scott Benner 46:54
not like you and me. You're a great diabetic. And if I had diabetes, I'd be way good at it. That's all I wanted to say. Yeah, just sound reminisce in the country right now. But, um, but so it? Yeah, it's fascinating. And it's not just around diabetes, it's, it's just how people's minds work. I, excuse me, I try to I try to tell my son one time, when he was much younger, he had this moment where I think he had a realization that he was academically much stronger than a friend of this. And I said to him, you know, there's somebody somewhere right now, who could look at you and think, Wow, this kid's impaired compared to me, you know what I mean? I'm like, we're all just, you know, if you're going to really stop and try to slot us all into a space for so that's a big waste of your time. But secondly, it's not important. Yes. Is your friend still a good guy, right? He's a good person, you like him and all that stuff. And there's a guy out there somewhere who's probably way smarter than you, who's also a good guy. You guys could all know each other and be great friends. It doesn't matter which one of you is academically stronger than the other one. And it just and just remember, there's always somebody out there. Who is bigger, stronger, faster, better, smarter than you are like, you're not the you're not the one. You know what I mean? So if you're thinking of, you know, crapping on the person below, you just remember, there's somebody who at this moment is being kind enough not to crap on you.
Lindsay 48:20
And if they don't exist, yet, they'll exist tomorrow.
Scott Benner 48:22
Right? Right. Right. It's just it's just a, it's Lindsey. I don't even know why you came on anymore. And I remember this isn't so good. All right. Goddamnit. Lindsey, tell me about being in Katrina. How
Unknown Speaker 48:34
old were you?
Lindsay 48:36
Oh, I had just graduated high school.
Unknown Speaker 48:38
My gosh,
Lindsay 48:40
I had spent one week at college. And it was I went to college in New Orleans. And yeah, it was. I remember, we're walking around, there's like two or three feet of water in the house. And everyone is scrambling around trying to get stuff up to the second floor to stay dry. And I was feeling a little wonky. Just a little short of breath. And, like, I need to take a break. My mother's like, yeah, yeah, you take care of you like Glasgow, we need you to be sick and I just started crying because I want to help right? And, and I couldn't Yeah, I needed to care more about how I was feeling then whether or not all the food made it upstairs.
Scott Benner 49:27
And that's often and then and there's an irony to you all you want to do is help your health is keeping you from helping and then in an effort to tell you that it's okay Sweetie, we understand you take care of you all that really did was make you realize oh my god, I'm not helping because of my health. And it just it's it's you almost can't escape the spiral that that that that that situation ends up being, you know, so the couple feet of water in your house. How long did the water stay in your house?
Lindsay 49:57
Well, actually, that wasn't even my house. My house was much closer to the beach and it had water up over the roof. Wow. This was my boyfriend at the time his parents house that we evacuated to, which was farther inland. Okay. And yeah, it got four feet of water on the first floor on the so we spent the day on the second floor.
Scott Benner 50:18
What does that do to a house afterwards? Is it livable after that? Or does it need major reconstruction after something like that happens,
Lindsay 50:25
and they had to you what they do is they cut off above the waterline because it It comes in the house slowly. So everything above the waterline it's not like it's splashing around like big waves. So they cut off the drywall, above the waterline and they spray the wood studs for mold. And then they put all that back up. Okay,
Scott Benner 50:49
so the house is allowed to dry out. It's treated with something and it's put back together again.
Lindsay 50:53
Yeah. Wow. So I mean, you don't have you know, air conditioning. But you know, if you have a second floor that could be livable. Or you get a trailer and you live in the trailer while you fix the house up. But yeah, don't they fixed it up? And it look better than before?
Scott Benner 51:12
Do people do people who can't afford it, just abandon the area of art? Do you see people just be like, that's enough for me, I'm out of here.
Lindsay 51:20
Most of my neighborhood was completely abandoned. Because you get your insurance money, and you get more of it if you rebuild, but you still get insurance money. And a lot of people just left because Katrina, especially there, you couldn't hire anyone to fix your houses. There were two, there was too much damage in too wide of an area that, you know, getting a team down there was way more expensive than if it wasn't a damaged area and not enough hands to help everybody who needs to help. So then it becomes an either impossible to find or too expensive once you find it. Exactly. And to this day, there are still houses that were just abandoned, and they can't sell them because
Scott Benner 52:05
I never got repaired. Wow. But so it's a devastation not just in the moment, but for for a long time afterwards. The area's just never the same again.
Lindsay 52:16
Yeah, I know that some of the smaller hurricanes and other areas while I was living down there, you know, it was much easier to fix up like three towns than it is to fix up, you know, but what was it four or five states?
Unknown Speaker 52:31
Yeah, it was crazy.
Lindsay 52:33
So that that is unique to Katrina. That's not the case like Ivan damaged Pensacola, but all of that was was repaired. Now, like, none of it sat there for decades.
Scott Benner 52:46
So as a person with diabetes, when you hear the hurricane, a hurricane is coming, and it's going to be that kind of thing where you have to run inland. How much of your focus goes to your medication and your things like that? Is that the first thing you think of or?
Lindsay 52:59
Absolutely, yeah, right. I mean, makeups on the list, but it's much farther down.
Scott Benner 53:05
Well, I mean, if the news comes, you're gonna want to spruce up a little bit before you definitely because I you have that thought when your kids first diagnosed you, you know, it rains hard. You're like what if all the you know you start you know, what if the pharmacy was closed and I dropped this vial of insulin What if everybody drops their vial Vincent the same time am I gonna have to shoot somebody at the pharmacy to get Arden her insulin like you know, to me like it's Yeah, I'm
Lindsay 53:29
terrified of international travel. I don't know if I'd be able to do it. Okay, because the black market value of insulin is very high
Scott Benner 53:38
it's a what if I got there and I couldn't get I couldn't get summer I lost my someone stole mine. So mine or anything like that. We don't actually when we go we we infrequently, but a few times in our life, like to go to the Caribbean on vacation. And we only go to the the US Virgin Islands for some reason, because it feels like at least if there was a problem we could I don't know like it just I don't know. It's it's probably a completely unreasonable feeling. But
Lindsay 54:06
yes, it's totally irrational. Have diabetics and other countries going to be in might be expensive, but it's going to be fine. I
Scott Benner 54:14
think the British Virgin Islands has somebody with diabetes though. You see you have that like but but to make the point is the first time we ever traveled like, that was a long time ago, when Arden was much younger and it was one of the considerations I remember discussing Well, at least it to us held territory. And the way I guess we ended up liking the place so we revisit back a lot but you know, the one of the things that got us there was just an irrational thought about insulin. It really was so and I pack enough when I leave to, I would say, you know, keep eight to 10 people with diabetes really healthy for like a month. You know, like it's just there's so much stuff like I look at the on the pods I take with me and I'm like, What am I expecting to have In here, you know, like, is she gonna need one every day? Which, why do I have so many? But then
Lindsay 55:07
ami and you better have it and it's not doing any good at home? Well, right I think about it right?
Scott Benner 55:13
So So when this, you're like wow Katrina is coming, your first thought is we're getting out of here. And I go, Oh no,
Lindsay 55:19
I have Katrina was not our first hurricane. I mean, you having to leave every single time is a crazy thought, okay, there's so many hurricanes, apparently not in the last 12 years. But when I was living in Mississippi, it was just every year there were a couple hurricanes. You can't leave for every single one.
Scott Benner 55:41
Yeah, bug out every time.
Lindsay 55:44
Yeah. And they kicked us out of our neighborhood, which is why we went seven miles inland. Not enough by the way. We really thought that it was going to hook in hit Florida, so we didn't leave like days before. And then once you get up to the day, the traffic's so bad that we couldn't have made it very far. Right. But that's
Scott Benner 56:07
the other thing is that everybody's not driving on these roads. And I actually said to my wife the other day, they were interviewing some guy who was like, you know, I don't feel like we have to leave because we're 10 miles from that line. And I was like, why is the guy acting like 10 miles is a big deal for a storm that's 300 miles across, like, why is 10 miles that's like the deciding factor for me saying, Don't worry, we're 10 miles wide, we'll be finally 10 miles not that far. And it just, it's funny how I get exactly what you're saying. I get you can't leave every time and yet when you heard a guy on the news, say we're not going anywhere. I was like you're a fool. But he's, to your point. He's lived there his whole life. And he's like, Look, I can't leave every time this happens.
Lindsay 56:47
Yeah, you get kind of jaded and kind of dead into the threat, which is dangerous, obviously. But yeah, when you have it when you experience it not hurt you so many times. It's hard to. I mean, the night before, we had a bonfire on the beach, like oh Katrina's come and let's go have a party.
Scott Benner 57:10
You know, you know, it's a good reason to get together. Yeah, my
Lindsay 57:13
first tattoo that night, Did you really? It was a horrible idea. I couldn't wash it. It went bad. It was like yeah, that's what you do. There's a hurricane. Let's go get tattoos and light stuff on fire.
Unknown Speaker 57:25
Cheese. That's
Scott Benner 57:27
another incredible perspective. Lindsey is a completely. She's just like looking from behind the mirror yourself a little bit like they should just be seeing seeing things in a Do you have this feeling about other I guess you do about other aspects of your life. You don't like the way you spoke about earlier about? Like, there's things worse that you like other aspects of your life? Are you sort of carefree about it? In that regard to do you think of things differently as a whole? Or do you think it's,
Lindsay 57:53
I mean, I'm a little bit of a control freak, but I definitely have worked on my perspective in a way that I stay happy about it.
Scott Benner 58:01
Okay, I gotcha. Well, you've got that boyfriend, he can you can tell him, he has
Lindsay 58:06
helped me so much, because he is not a worrier. Right. And he is not a super planner. He went up, he went out of the country, and like, didn't even have a hotel reserved. I couldn't do that.
Scott Benner 58:20
So my, my wife and I have this same dynamic where my wife is very sort of, like, structured and type, I guess. And we were first married. This is gonna sound completely ridiculous. And this will be a great way to end the hour. So I had watched the movie The American president in the middle of the week. And it made me feel very patriotic. And I don't know why. And I said to my wife, my very new wife, by the way, we had only been married for a very short amount of time. I said, Hey, this weekend, let's go to DC and sightsee. He said, I've just watched the American president, I'm feeling very patriotic, you should watch it too. You will also feel patriotic, and then we will go to DC and we will sightsee. And she was like, okay, because we weren't together that long. And she was probably, like, look at it that I married. But But you know, she's probably she's like, okay, so I said, when we get home on Friday afternoon, let's just, you know, throw a bag together, and we'll go and she's like, okay, so we get in the car, and I've got this Jeep, we were at the top down. We're really young. We haven't been married very long. And we're going down 95 going south down 85 towards DC. And she says, where's the map? This is before navs and cell phones. And I said, I don't have a map. She will go, you've been there before? And I'm like, No, not really. Like, you know, I went with a school trip when I was a kid. And she said, Well, how are we going to know when we get there? And I said, Well, I figured we drive south on 95 we saw giant white buildings and then we get off an exit and there and we had a hotel room and then we'll find the hotel. I'm like it's numbered streets going one way and letters going the other way. We just have to find word like the G and the 10 intersect, you know, like it shouldn't be that difficult. And she just you know, played it. So like, yeah, sure, everything's fine. Well, we got to the hotel Lindsay, we checked in She got in bed, like she had been kidnapped and beaten, and pulled the blankets up to her chin and looked horrified. And I was like, I'm like, Hey, what's wrong? And she's like, I just want to try to go to sleep. And I was like, are you okay? She was, that was just the worst three hours of my life. And I was like, why? And she was because I didn't know where we were going. And I said, Well, we were going south. But we saw the big white buildings. I said, it worked. We're here. And she just her personality did not lend to that. And that's really one of the first times I recognize the real difference between that, you know, like that, how, like, free and I was just like, well, it'll be fine. And she was like, Oh, God, why don't we have a map? How come? We haven't talked about this? Why didn't we write this down? It was no joke to her. She was not overreacting. It is how her it was just how her brain works. And she
Lindsay 1:00:47
was anxious just listening to you tell that story?
Scott Benner 1:00:51
And really, it makes sense, right? South 95 big white buildings all lit up, look for an exit that says washington dc on it. And you're there. Right, then that makes sense. You're like, no, does that make any sense at all?
Lindsay 1:01:04
That's how it happens in TV and movies. I'll give you that.
Scott Benner 1:01:08
Driving to Washington DC worse than death?
Lindsay 1:01:13
Like, oh, that would that would make me feel anxious that somewhere? Where can we stop for gas on the way? Like, what if what if you get a flat tire?
Scott Benner 1:01:21
Oh, my God. See, that's it's such a great insight, because that is exactly how she felt. And it would have never occurred to me. And because we had only been together for a short time. I think she was just trying to be a sport, you know what I mean? And so she didn't bring it up. Now, if I said something like that, she'd be like, You're an idiot. And I'm not doing that. I'll be like, okay, and, but,
Lindsay 1:01:41
but it just made me the dossier. Yeah,
Scott Benner 1:01:44
let's go over this a couple times, before we leave and make sure everyone even tomorrow, I'm taking my son to Boston to do a couple college visits. And the extent of my planning is that, um, I know what hotel we're staying at. I've made a you know, I've made a reservation. And I know what time he has to be at the school on Tuesday morning. And that's pretty Other than that, I couldn't possibly tell you anything else about the trip? And I if I told my wife that she'd be irritated with me.
Lindsay 1:02:12
Oh, do you already have the snacks in the bags? Do you have a cooler setup?
Scott Benner 1:02:16
No. So I'm not. So this is my son who doesn't have Thai diabetes. So my daughter will stay behind, right? But still,
Lindsay 1:02:22
we're still human beings. You guys have to eat and drink
Scott Benner 1:02:26
awawa You must have something like a wah wah down there. Right? It's a place where there's gas and food at the same place. It's America, where could you go where you could meet? If you had just $10 in your pocket? You'd be fine.
Lindsay 1:02:37
I just I need the cooler.
Scott Benner 1:02:41
I'm actually going to go out today buy a backpack? Because I don't have one. And I don't want to take a piece of luggage with me. I'm like, That's too much. Yeah, so I it's just it's two different ways of thinking about things
Lindsay 1:02:52
it is. And he has helped me a lot to kind of let go of some of these irrational fears and calm down a little and be more realistic.
Scott Benner 1:03:02
Let me just let me tell you that we need
Lindsay 1:03:04
only need a week of supplies for two days, I don't need a month.
Scott Benner 1:03:09
That's good. That's that's a nice improvement. But let me say this, as a person has been married for 21 years, to a person who sounds like you a little bit. You will eventually find a way to ignore the good advice that he's given you about relaxing. And one day when it's far too late. You'll just pummel him with your anxiety. until he's like Fine, I'll be anxious to leave me alone. And that Ladies and gentlemen, is marriage. Now. I'm sure I only mean like 18% of that. But But nevertheless, you were really delightful. I've now cap you over an hour, I apologize. I really do appreciate you coming on and being open because you have thoughts that either are pretty different from some people, or at least I think you know that they might not be popular with people and so that it was brave for you to share them. So I really appreciate that. And, and we came together on the one idea but then this conversation ended up being way better than that. So thank you. So
Lindsay 1:04:08
yes, I'm sorry, we spent so little time on your original topic.
Scott Benner 1:04:12
Now. My original topic was just an excuse to get john. It's all good. Plus, you answered the question fine. It's just here's the secret the podcast and I'm gonna give it away at the end of the podcast there. You can't really do a whole hour on one thing that becomes really boring and nobody wants to listen to that. So you have to have a I think it has to be a conversation and wherever it leads, it leads and you said some interesting stuff. When we first started talking What was I gonna do? Ignore it? Like what were you gonna say? There's worse things than dying and I should I have segwayed into So anyway, you're on for this. Like, how would I leave that just hanging up in the air? Like, I gotta find out what's worse than dying. Let's get to it.
Lindsay 1:04:49
Things Let's start with the hurricane.
Scott Benner 1:04:52
Driving to DC without a map.
Lindsay 1:04:54
Oh my goodness. Yes. Oh, yes.
Scott Benner 1:04:57
All right, Lindsay, you are a cornucopia of feelings. Thank you for Much Thank
Unknown Speaker 1:05:00
you Have a great day.
Lindsay 1:05:01
You too.
Scott Benner 1:05:04
I want to thank Lindsey for coming on and sharing her perspective. I want to thank Dexcom and Omni pod for sponsoring the podcast there's links to your show notes to find out more about both of the great products. I know the sound quality on this episode was not perfect. There was something going on on Lindsay's side, but I just let her conversation was too valuable not to share. You can look forward to hearing the audio quality that you've come to expect from the podcast and all the weeks moving forward. Just a little hiccup this week. Thanks for being patient.
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#156 Worry is a Waste of Imagination
Corina is the mom of a small child living with type 1 diabetes....
She shares her fear with Scott and they talk it through
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello and welcome to Episode 156 of the Juicebox Podcast. Today's episode is with Kareena Krishna is the mother of a young child who's recently diagnosed. And a lot of this episode centers around fear. But it's not just about being the parent of a child with type one. It's about so much more. I really hope you listen to Juicebox Podcast is sponsored by Dexcom and Omni pod. There'll be ads in the show for both of these devices. I hope you'll listen to those as well and check out the links in the show notes. You can always go to dexcom.com Ford slash juice box to find out more about the best continuous glucose monitor I've ever seen. Or to find out more about tubeless insulin pumping, go to my Omni pod.com forward slash juicebox.
Want to thank you guys again for listening and for sharing the show. I can see it in the downloads, very much appreciated. Please know that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before being bold with insulin.
Karina 1:17
My name is Karina and my son Mack was diagnosed with type one at 10 months old in 2016. So he's just had his one year, as I've learned it's the thing the one year type one diagnosis anniversary on March March 4,
Scott Benner 1:35
how are things for you guys? Since the diagnosis have things improved? Or are you still are you in a holding pattern? How's it going?
Karina 1:43
Well, I mean, it's day to day, right? Just when you think you've mastered it, and you never really do it's, uh, it changes again. So I think I'm like, hey, we've got this under control. I know how to control this. And then, you know,
Unknown Speaker 1:57
something happens.
Scott Benner 1:59
It's all gone. And you're like, I
Karina 2:00
don't know what it is. And we're like, what did you do? Like it's accusatory and accusing starts with my, my partner. I'm like, What did you feed him? Why did you give him how much insulin Did you give them? So the battles begin, and he's like, You're crazy. And nothing happened. And we feed them the same thing, something different happens. So I've learned, which is out of my character, because I like to be in control that it's okay that I haven't done anything wrong. And we're just going to keep on finding more tools in which I want to say thank you to you, because I don't think we need to be where we are today without me stumbling upon your podcast. And it's helped us immensely to live in those ebbs and flows and also take back some control with giving more insulin and also easing up on the carbs. I was a big carb crazy and food crazy where it's like he can't have benched. He can have fruit, he can't have rice, he can't have anything. So you've actually helped me loosen up a little bit there too. So I
Scott Benner 3:01
want to hear the thank you from him because he was probably he was from eating some pretty nasty stuff for a little kid, right? He or did he take to the vegetables and things are?
Karina 3:10
He's Well, he's a big eater, which is also a concern because i've you know, it's, it's just like a snowball effect of research. So I started researching that some type one kid, or some type one people have issues with feeling that satiated feeling so they start to eat more. And so I was thinking, Oh my God, he's gonna be obese, and he's only 10 months old. And so yeah, that's where my head.
Scott Benner 3:36
So I have to ask you two things. You said two things in my mind that conflict, right. And and I'm, I'm aware of it kind of hyper so and nobody knows. They'll know by the time yours comes on. But I've interviewed a lot of people recently who have described their significant other as their partner. And I don't usually don't I don't usually dwell into it, but it's your personal thing. But then you said that your partner called you crazy. So initially, when you said partner, I thought, oh, probably lesbian. And when you said Call me crazy, I just when you say crazy, I just went Oh, just not married to the guy.
Karina 4:08
And like, stop calling your partner. I'm like, Well, what are you like my boyfriend? Like we have a child.
Scott Benner 4:17
I just I just brought that up. Totally. show off my my powers of of consideration.
Karina 4:24
Yeah, I think they call women crazy. And it's irritating. I don't think he's physically called me crazy, in a way with all due respect to him, but I know that he's probably thinking it so.
Scott Benner 4:37
Okay, so this is even better. He's not calling you crazy. You were doing something and thinking he probably rightly could call me crazy.
Karina 4:45
Yeah, I'm pretty self aware. I know when I'm a bit of a control. So good for you. Like spinning like I don't know what to do, though. Yeah,
Unknown Speaker 4:54
well, nothing to do with why we're talking but I'm delighted by it. So thank you very much.
Karina 4:58
Yeah, that's a fun layer. So the whole type one thing because you know how how much maintenance there is?
Scott Benner 5:04
Where you quote unquote crazy before the diabetes?
Unknown Speaker 5:08
Oh, for sure, okay.
Karina 5:12
With different things, we would go shopping to buy furniture, and we'd be like literally coming home. And he's like, no, Corinne, I know you want to set this up right away, but it's this time we need to eat. So can we just agree that you will, we'll wait till after I promise, right? When we get home after we eat, we will put it together. And I'm like, I will try my very best. So I like I like to get things done. I want to I just, you know, I want to get it done. I want to figure it out. I want to, you know, solve it, which is why this is such a nightmare with type one.
Scott Benner 5:41
No, I hear that. And so and so I have two questions based on that has has come we're gonna continue to call you crazy. And by the way, this episode is so close to being called crazy. Kareena, I have no idea. Sorry, but I'm leaning that way right now.
Karina 5:57
So I'm playing around near the end,
Unknown Speaker 6:01
swinging around.
Scott Benner 6:03
So did your knee. So there were some things used to be more concerned about than you are now. And it's sort of shifted for you. And at the same time, looking into your personality and the idea that you want to kind of figure things out and complete them and those sorts of things. Has that did it initially drive you in a bad way? And is it? Is it a better driver for you now? And if so, what changed between that and now?
Karina 6:27
I think I've always used it to be a positive thing. Like I said, I'm pretty self aware. So there's not much that you're going to tell me that? I don't already know. I don't mean you personally, I mean people in general. So I think that, you know, I have learned in the past how to either explain more, I have a stepdaughter that's 13. So we learned pretty quickly about not just telling her No, no, no, but just to say, Hey, we're saying no, because of this, this and this. And that extra explanation doesn't make up for the craziness. Again, we're going to try and find another word. But it doesn't make up for that. But it at least helps give it context. So I think that I have you know, the benefit of of the benefit of the research and listening to people that are going through it like yourself, has given me the context which I needed. And that helps because it gives me that sense that I don't have to do all the work myself. I don't have to do with every ounce of research.
Scott Benner 7:25
Now I think that it's it's also when you're an adult, and you've You know, you're pretty far into your life at this point, not much of what happens in the course of a day. Do you not have context for right and so so nothing seems too surprising or off putting and most things you know, that are right, you're like, Oh, I know what to do here. And then someone throws something in that not only do you have no context for it, you don't even know the words they're using to describe it. and ended up ended up here is very attached to the life and death decisions you're gonna make about a 10 month old.
Karina 7:55
Exactly. Yeah. And that's the thing too, like, I think the other part is, is I'm used to, I have no problem questioning. And I probably question a little bit too much. But you know, when the medical team after is diagnosed after max diagnosis, told us what to do, I thought we do this. And we feed them this, and this is the outcome. And that was never the case. So like when you start to do the research, and you understand like, hey, you're supposed to get these results, and you're not getting them, then I start to question what I'm being told. Yeah, so yeah.
Scott Benner 8:33
So what I'm hearing is really base, it's a basic thing that happens to everybody they gave you. They give you basic tools, like stripped down tools and said when you do this, this will happen. And and that never happens. And when it does happen, it almost seems like a mistake when it happened. So right doesn't it almost seem it almost seems like it not happening is what's supposed to happen. When it actually goes the way they said you're like, oh, that How could that have been weird? You know, like, how did we actually end up in the right place? It's um, it's, uh, I still I struggle with it a little bit like I still hear myself from back in the day when I think like, I get that they try to walk you through it slowly. Right? I do understand that. And then the me that's lived through this podcast for over well over 100 episodes now realizes that a lot of people can hear this information in a more compressed way and absorb it and make it actionable. It doesn't seem like that thing that I was taught 10 years ago stands true for everybody. And by the way, I'm assuming it's, it's right for some people. But I just think that the doctors have gotten to a point where they just kind of lowest common denominator the whole thing. So if one out of 10 people they see during the day doesn't have the I don't know the the confidence or the ability to absorb everything at once and put it into practice and in a fairly short amount of time, then they don't bother telling it to anyone.
Karina 9:56
Yeah, I mean, and that's exactly true too. Like, we will You know, we were massive in DK and in critical care, and we get released into the regular. So we're in Toronto at the SEC Children's Hospital, which is an amazing hospital, my nephew, coincidentally and his cousin until but had a heart transplant. So he was there when he was an infant. So look, we know the hospital very, very well with the teams there are amazing. Now they've saved both, you know, my nephew's life and my son's life. So we're indebted to them. But you come out and you go into diabetes, daycare upon discharge. And you know, I hadn't done research at that point, because you're just done like, you know, seven days ago, my, my son and I just had a cold. No, we didn't have diabetes, we had a cold, but this was it. Like, that's why he wasn't eating. That's why he was sick. And then now he's got type one. And I'm you know, stuns, we're exhausted. And we go into learn how to care for our child, and they're saying, You're going home at the end of the day, and you're going to be giving your child needles and I was like, You're insane. We're not leaving, we're staying here. I don't want to go home. So and then you learn like only 1% of the population of the type one diabetic population has it has diabetes this young. And so then even in the hospital and critical care, he was, we were so in critical care. They have one nurse per patient, and he was only in critical care for a couple days, three days maybe. And at one point, they so they've taken him off into Venus and gave him his first injection, I think I think it was that. I can't remember if it was a game or what it was. But anyway, I think it was that he they given him his first injection. And then he was going low to the point where she took his blood and he was 1.9. And his eyes are rolling back. And I'm like, we're losing and we're losing him. And she's like, I know and you never see critical care nurses panic ever. And she was losing her mind. And she was looking for the code button. And I was like, What the hell is going on? Like, you guys, you guys should know this. Like, what if my son going low? Like so then it sort of gave me the feeling like they don't get this many children this young, which they do. But that was my sense. I was like, You don't know what you're talking about. Because everything you have is geared towards an older child. Even in our diabetes, daycare, we show up and there's like, play toys but there's no crib I'm at my son's 10 month old like what we can't sit here for for the whole day. Like he needs to sleep. Like the lights are all on it was just like,
Scott Benner 12:28
it was like it didn't feel like it was it was kind of focused on kids that that small and then it seemed like the care was also going in that direction. So do something for me real quick for the rest of us who don't live in Canada. what one can you put 1.9 onto my scale?
Karina 12:44
Oh, yes. Okay, I meant to do that I was gonna do all my calculations for you. I was gonna be so impressive to you. But anyway, a month to 1.9 times 18 is 34.20.
Scott Benner 12:57
By the way, people there's gonna be bleeps In this episode, we're not gonna be able not to curse apparently.
Unknown Speaker 13:02
No, that's okay. Everyone's flashcart to a gap in time.
Scott Benner 13:07
It's the medium thing probably. Well, you know, it's funny. You said you think if you're not sure if it's coincidental that you had a family member in the same hospital? And I thought because of a Canadian, Alanis Morissette. I don't even understand what ironic means anymore. So
Karina 13:26
we've had it wrong the whole time. But I'm pretty sure it's not coincidence in this instance. I guess bad bad luck.
Unknown Speaker 13:35
Bad luck. Yeah.
Unknown Speaker 13:37
Did they do with those kids that are
Unknown Speaker 13:41
gonna stop talking?
Scott Benner 13:44
Here's a great reason why I love on the pod. So their ad this week that they pay for, they want me to tell you this. 90% of customers say purchasing decisions are influenced by online reviews. Because of this, it's important to encourage reviews on channels like Google. Moreover, positive reviews are fantastic, because it helps them to understand what they're doing, right. But reviews that are critical, that help them understand what they're not doing right, or what they could be doing better are also really, really valuable for them as a company and for you as a user. So they don't just want to hear that you love the Omni pod. But if you do, please reach out and let them know. If you have something you really think they need to understand something that could help you or other people that use the tubeless insulin pump, share it be constructive. So on the pod is soliciting reviews through Google reviews, and I'm going to put a link in the show notes. If you use the Omni pod insulin management system for yourself or for a loved one, please consider taking a brief moment to write a Google review. I'm going to give you the link in the show notes. Again, like I said, it would be easy to be cynical and say this guy's getting paid to say this. Well, they've been using this insulin pump forever. But I'm telling you in my heart, I would never let someone put an ad on this show that I didn't believe in and trust me Other people have asked, and you don't hear their ads here. You can always go to my on the pod.com, forward slash juicebox. To try a free no obligation demo pod today. When you do that, they'll know you came through the podcast, that link is also in the show notes. There's no way to beat free with no obligation. I absolutely love on the pod and I think you will to my omnipod.com forward slash juice box. You can also always use links that are at Juicebox podcast.com, or in your show notes.
Karina 15:30
Don't forget to leave that review. Because I'm supposed to take my kid home and be able to help him. So for a long time, it was the lowest that scared me so much. Because I I was just like, I saw him nearly passing out from something that a medical professional did. I'm like, Oh my gosh, so for a long time again until I started listening to your podcast. And the one that was, oh god, I kept my people with insulin was the game changer for me. I literally, I didn't have time, you know, there's only so much time in the day, I work full time. I go to school at night. So I just don't have much time to read and get stuff. So I literally cram my education via podcast on the way to work. And then I recognized Oh, great. I can also listen to podcasts while I run, which is a beautiful thing, because I forget that I'm actually exercising and in pain. So I love it. Yes, thank you so much. But the people with insulin, I literally came back to my brain. I'm like, okay, I said if he's above 1212, which is? If he's above that seems high, which seems obvious. But if he's above 216, we're stopping it like I'm not letting him go that high. Whereas before, like my doctors were like you don't treat him you don't treat a high at all? No, it was like here because of the stacking, which is one of the questions. So back to my running. So the problem with the running was I have all these questions while I'm listening to your podcast. And I'm like, Oh my gosh, I don't have a pen. So I started using Siri to take my notes. So I'd like literally write down notes so that I could go back and figure out questions I could ask you.
Scott Benner 17:09
Thank you. I I'm starting to feel more pressure about the podcast now. But no, no, seriously, I think that first of all, I think that's amazing. And I think it's you know, I think it's it's indicative of the part you're in right now. You don't need me like everything brings up a new question. And, and and everything is, is scary because the doctor told you to do this. And then now you're out in the community and you're hearing while other people do this. And you know, now, they tell you not to stack insulin for a very simple reason, because you can't tell if it's if you've stacked it up and it's all going to start working at the same time and crush your blood sugar. I have you know I say all the time, I'm very much more free with it than I could be if we didn't have a CGM Dexcom CGM. So I can see my daughter's blood sugar when it starts to fall.
Karina 18:05
Yeah, we didn't start that until we had the CGM. I didn't obviously feel comfortable because I'm not I mean, we've had times where we've poked him before the CGM, like 22 times,
Scott Benner 18:13
you just get out of your mind, you still can't figure out what's happening. And so you just you feel like you need to keep going. Well, so you did get you, you did get a Dexcom are you did you get a different? Yeah, no, we
Karina 18:23
got the Dexcom. We, I think, again, listening to your podcast can help give us a little bit more context of what to do because there's so much out there. And we also he's so little like to put something on his body. That was a big thing for us, like I really wanted, you know him to be able to make those decisions. But we we did a try one over Christmas. With a g4, the G five was announced in Canada yet. And so this past December, obviously, with the same Christmas. So it was we did a trial, and honestly, I haven't slept so well in since he was diagnosed. So I thought for everyone's sake. It was just the right thing to do. And our insurance company doesn't cover it yet. So it's obviously a bit of an expense. But I'm sure that they will cover eventually. And we got it officially about the G five we waited for the we waited until the G five came out in February. And so now we've been on it since i think i think we got it in early March, late February.
Scott Benner 19:21
Can you see his blood sugar right on your phone? Yeah, I'm
Karina 19:24
not looking at it. I'm looking at the calculator, but I'm actually pretty good. I thought that I you know, there's some days where I'm looking all the time. And I'm like, do I call daycare do I call call daycare? And then I just wait for that five minutes. And I'm like, okay, the arrows going the right way. I'm okay. So I do I look. Some days I look more than others. And then other days, I'm like, Wow, I didn't check for three hours. So
Scott Benner 19:41
yeah, and it gets easier. And it's funny because I had a real concern in the beginning when share you know, the feature came up I thought oh, this is gonna burden people. And just, you know, true to form. It didn't. It was something that was something that and I say Trudeau form because I think of things like you know when Facebook changes The layout of the front page for two days people are just out of their minds, why would they change? This is how I liked it, it worked fine, this is gonna mess me all up. And then three days later, I've never once heard anybody say that again.
Karina 20:10
Remember what it looks like, like, we're at an onslaught of information out there. Like, you don't gotta remember that it was blue or white or whatever, people adjust
Scott Benner 20:19
pretty quickly. And it's also a human nature to not want to adjust. And so but but if you want these technologies to continue to improve, you are going to be uncomfortable at points, you know, there are going to be moments when you're like, oh, but I'm accustomed to this. Don't change it. Yeah. But it's cool to hear that that you got, you know, that didn't last for very long. And I have to say, too, I don't. I really don't spend very much time looking at it at all, to be perfectly honest. It's just there when I need it.
Karina 20:46
Yeah. And our daycare has now the best thing for us is that our daycare has it. And it's just we went through another round of training with them to try because there's two people that sort of take care of him, but I think one of them was on vacation a few weeks ago, and I could see it dropping, dropping. And so I called a call and I couldn't get through, and I called again. And finally someone picked up and they said, Oh, yes, well, he's sleeping. I'm like, you need to wake him up. Like, this is not good. We don't want him to get out and say, but I'm like, I would like my child to wake up. I don't want him to continue sleeping for the rest of his life.
Scott Benner 21:17
This might be the wrong kind of sleeping.
Karina 21:19
Yeah. Like, wake him up, and I want to be there, I want to hear him, I want you to tell me that he's alert and give him so they so I gave them you know, again, they don't they don't do this 24 seven, they do this for a good chunk of time. But they still, you know, it takes a long time to understand it. And I'm leaving my son with them. So the CGM has helped us that way. Because I can literally call and go What's going on? And, you know, get them to back it up with a fingerprint if need be, or Yeah, just talk them through it.
Scott Benner 21:46
It's so it is just very interesting. listening to you this early on in the whole process. Like, seriously, I don't mean it. jokingly, I know you're a year into it, you're a height, listen, you're you're a focused person, you're a high energy person, you you you are somebody who believes they can get something accomplished. You seem like, at first glance, the really wrong person to have a kid to get diabetes, right. But at the same time, but at the same time. You You seem like you're managing it. And and I and I really feel like I could talk to you a year and a half from now or two years from now. And you just wouldn't be this person anymore. Because I think it's difficult for people to understand. You know, my daughter was two and she was diagnosed, she weighed about, you know, 17 pounds at that time. And it's a different animal to have a person with diabetes who can't really articulate how they feel, or their concerns or their fear or anything like that, you know, you do feel like you're you do feel like you're just in the dark constantly.
Karina 22:49
Yeah, right. And you are crying because they're too or they're crying because they're like, high or low or no, like, it's imminent death all day long. Like, you're just like, What is going on? Oh,
Scott Benner 23:01
yeah, no, by the way, I just have to say I've heard a noise in the background just now on your end. And because you're Canadian, I thought it was a wolf.
Karina 23:10
Wolf, like my one of our creative directors, has her two twins in them running down the halls and screaming,
Scott Benner 23:18
it's completely unfair of me, because if you were calling me from any place, the United States, I would have just assumed it was something else. But you're in Canada. So I imagine there's like a moose outside of your window.
Karina 23:29
Maybe Maybe we're downtown Toronto with skyscrapers, but like a mini Manhattan, I guess.
Scott Benner 23:37
I think is when I'm
Karina 23:38
sure that we do have major parklands. So I'm sure there isn't. There's a coyote or at least a coyote. Pretty close. I mean, they do. They do have new news clips. A couple summers ago where people were throwing balls from coyotes. I may be making that up. But I pretty sure I heard that you
Unknown Speaker 23:57
might be making coyotes.
Karina 24:00
They were playing I think they were playing with the coyotes or something but like it was a dog, but don't quote me on that cuz everyone's gonna think that we're really not up here. Sure.
Scott Benner 24:11
Okay, so what's been the biggest leap for you so far? You want to talk about elite? How about understanding what your blood sugar's doing? how fast it's doing it when it does it? What's impacting it? That's elite. And that's exactly what you get with the dexcom g five continuous glucose monitor. You see how slick I am there. I was like, this was what I said back when I recorded the podcast, and now it's an ad. All right, people listen. dexcom.com forward slash juice box. You want to be able to see your blood sugar. You want to see how fast it's moving. You want to see when I put juice in here. This is how long it takes to settle back out again. Do you want to get off the roller coaster? You have to understand the data that comes back from the Dexcom you hear us talking about it every week on the podcast. It could not be any clearer. This is the way we roll. My daughter say when See has been between 5.6 and 6.2 for now over four years. And I'm telling you that without the Omni pod insulin pump and the data that comes back from the dexcom, continuous glucose monitor these things, these successes do not exist in our life. How about sharing? Follow? How about that idea? How about being able to see someone's blood sugar when you're not with them. So it's not just these little successes you can have between five when you get home from work and you know, before you go to bed or something like that, but you can see somebody's blood sugar on your phone, when they're sleeping. When they're at school, when they're off at College, where they're in gym class, when they're playing softball when they're playing soccer. You can see it always, this is definitely something you should be interested in. Please trust me, please either click on the link in the show notes or go to dexcom.com Ford slash juice box to find out more. The Dexcom g five continuous glucose monitor is a game changer.
What's been the biggest leap for you so far? I know you've seen the blood sugar is a big deal. And you get that but and you know, we talked about taking care of higher blood sugar's but how do you make all that happen? Is it it to me your fear seems palpable like that that's something I've heard over the last half an hour, you've mentioned a couple of different times being scared in the hospital, you know, at diagnosis, like you know, Bobby, when he's in daycare, so fears like an overwhelming factor in your life still. And I'm, I'd be really interested. You know, if we were if we were friends and we were chatting about this, I'd be really interested in trying to get that that part of this process gone for you, because it's such a big leap after you stop being afraid.
Karina 26:50
I think the hard part is that your medical, like we just had our three month appointment a couple a few weeks ago, and got it a Wednesday and it was seven and a half, which I was like, Oh, really? I was like, No. Why? Why? Why is it seven and a half? We need to get the lower?
Unknown Speaker 27:06
Was it What was it prior?
Karina 27:07
I seven and a half? So it didn't change?
Scott Benner 27:09
Okay, but but seven is very first of all very good, especially for a little kid.
Unknown Speaker 27:13
Yeah. You know, everybody says,
Scott Benner 27:14
You can't listen, that they're just trying to be nice to you know, telling you for real. And so, you know, it's it's, it's hard to pinpoint exactly what they're going to eat or not eat makes it more difficult to Pre-Bolus you know, they're, you know, they're, they take naps. You know, like in the middle of the day they you know, you know, my daughter doesn't just decide to lay down it's a matter of fact, you know, when when when people go to sleep I see with Arden all the time, when she finally goes to sleep, her blood sugar begins to fall almost all the time. I'm already thinking about getting Jennifer Smith back on to talk about why your blood sugar gets low when you are that
Karina 27:53
that would be great. Even let's say like, I'm like, Is this normal that we're giving him like, I forgot somehow to get bananas and yesterday at the store, but I was like, well, we have honey and I love that we use I think you said it once to like it's the funniest thing to see a child debt asleep, eating and like searching for that food with their mouth. Like it's hilarious, but I forgot bananas. And so I gave him honey and it stabili like I just did the nudging with the sugar surfing, nudging. And so that worked. But then like, a few hours later, the alarms are going off. And we did a little bit more. And so I didn't I don't know if I maybe I haven't listened to that episode yet. But I'll go back and listen to but I didn't realize because I said it. Well, Bo was saying, I don't understand what's happening. Like maybe we need to drop his 11 year and I'm like, no, we're not like I'd rather give him a little bit extra to help him and be up five times a night then having behind. It's just that's where I am now like, whereas before, I'd be like, I don't want to see a single digit because it freaked me out. But that was before the CGM now, like double digit are like, the worst for me. And I mean double digits,
Scott Benner 28:59
like a high number.
Karina 29:00
Exactly. So I'd be like 10 times each. That's 180 I can't do that math in my head. So if I sound like a 180 I'd be like, freaking out. But
Scott Benner 29:11
so so let's talk about that. I think that, you know, I just this morning before I spoke to you listen to one of the podcasts that I like invisibie Leah, and they were talking about they were talking about emotions and how the the, the standard concept that we have of emotions are that they happen to you. But there's this researcher who's making these kind of great, you know, inroads with the concept that some of your emotions are, are not just happening to you, but you can be in control of them a little bit. And so I would think, just from listening to you for a little bit, keeping in mind I have literally no training whatsoever in psychology, that I think you're creating your fear. Oh, yeah, then so because you You seem like cognitively you're not scared. But then your reaction pushes you to a place where you feel like you should be, which is afraid for his life. And and I think if you I think it's possible, you might be your own trigger. Yeah,
Karina 30:13
I need to figure out, I think you hit the nail on the head, in some respects there, I think that my response to fear is to read as much as I can like, that's why I'm going to night school for to become a holistic nutritionist, like I work in advertising full time I have a child with Type One Diabetes, I don't need to be going to night school two nights a week really, to figure this out for you for yourself, before the complications arise, I want to know that I can help support his liver, if he has liver compensation, I want to know that I can help support his kidneys in a holistic way, versus just more dialysis and drugs and everything else I want to be able to be prepared to read about that I haven't physically been able to read about. And listen, I think there's a couple of I think you had a couple people on that talked about the death of their children. And I did listen to one of them, I believe, and
Unknown Speaker 31:05
it was
Karina 31:08
it, you know, I wanted them to tell me exactly what not to do. But obviously, that wasn't the purpose of the podcast. But you know, it's so you know,
Scott Benner 31:20
yeah, and so I do think you're in a you're in a spot that I completely understand, by the way, that you're just just thinking about, but at the same time, I understand feeling that way. But I would want to encourage you not to, you know, because I think the idea that knowing for sure something's going to go wrong in the future is only going to sort of Ruin now. For Yeah, you know, and and so the lesson you might want to take from, from the moms who have shared about their their children passing away, as you know, one in one in their early life and around 12 or 13. No one is a teenager just about ready to graduate school. I think one of the lessons there is they both said the same thing, they wouldn't have traded, like the life their kids got to live for the promise of more, because what if they? What if they just lived this sort of covered up scared life and then got 40 years of fear instead of 24 years of happiness? And I think you're in a really kind of strange again, understandable, but, but but spot that you in my opinion should get out of if you can be you know, because because if something does happen 40 years from now, to your son's liver. You know, there's probably gonna be there's gonna be advanced by then that you can't imagine right now. Yeah, yeah. So I think that my my, my thought here is, try to imagine that 40 years ago, somebody was trying really hard to come up with a weight or, I don't know, regulate insulin better, except now that just sort of exists in that person. Didn't, they weren't the one who did it. You know what I mean? Like, I think that even though you're living in the best possible time to have Type One Diabetes right now, that five years from now is going to be that much better. And 10 years from now is going to be that much better. And it's hard to on sorry, hold on a second, I just have to tell her something. She needs a couple of little snacks. And for some reason is is incapable of reading up to tax. Just Just what I'm like, well just look up a little bit. It's right there. You know, but but but but nevertheless. So. You know, there's going to be you know, I know that people get promised all the time. You know, there's there's that old adage, I was told there'd be a cure in five years like this thing, right? So it's hard to say stuff like this, but I am. I have no backroom information. I only know what's out in the public. But I would bet my house that we're all going to be using insulin pumps that talk to glucose monitors and have an algorithm that decides on when to cut your insulin back and when to give you more insulin by 2018 2019. And that is so close to now it's it's you know,
Karina 34:23
yeah and i mean i look at macros still only be like under five
Scott Benner 34:29
right? And so so you trying to figure out a microbiotic that might support his liver better 35 years from now, may not be a good use of your time is what I'm saying. But, but I don't want to I'm not mocking you because I 1,000,000% understand how you feel. And when you're and just like in the beginning when we were talking about not getting enough actionable direction from doctors in the in the vacuum. You do it ever you do because you're trying you're trying to get somewhere trying to get the Something tried to fix it trying to get past it.
Karina 35:02
And I just when he was first diagnosed, I literally did. And I was probably a little bit not judgey. But like, oh, how come people don't know this, like I researched anyone who found a cure for type one. And and I contacted about five or six scientists. There's a couple of Harvard and Princeton like there's one in Toronto that I messaged you about initially? Who's doing that clip human clinical trial right now. And so I did all this research, and then I think the, and I was, I was all right, always leaning towards trying to give my son a more healthy diet and try not to, you know, try to limit his sugars in general before diagnosis and had that mentality. Obviously, you you know, if he didn't have type one, it'd be a different, you know, you get you're on the road, and you're like, oh, here sure have McDonald's I hear sure have this. You know, it's guys contract is here shirts Halloween? Sure. You know, but because he has type one, you're not as it's not as a kind of go to as much as, as it would have been? Probably. But so I did all this research. And the dietician of the hospital handed me the sheet with food on it. And again, it was geared towards someone who was older, because there's like Caesar salad on it, and all this weird stuff. And I was like, what, like, I wouldn't feed my kid this food, like, what is this? There's, so it didn't give me the tools. And then they were saying you need to feed him 90 grams of carbs a day. And I'm like, do you know how many you know how much that is in a serving. So he's 10 months old, like, he can't eat like a half a cup of rice. And like, that would be all he could eat better. With the other things, we're trying to get into him like healthy proteins and vegetables, and make some fruits like, you know, he's going to be 500 pounds. So I was like, he can't eat that much. And luckily, like you talked with picky eaters, he was he's a very, very good eater, almost to his detriment, because he always wants more. But I was just like this, there's got to be another way. And I just wasn't getting it through the dietician and book it and saying, you got to stop fighting with a dietitian about this. And I said, Well, I just I'm not relenting like she handed me the Canada Food Guide, which is a debunked, you know, it's a joke here. And I was like, I'm sorry, I'm not Feeding My Kid this way. Like, that's, that's not a valid way of eating anymore. And so I said to him, we have to go. So I tried to find a naturopath or someone that specialized in diabetes in pediatrics, couldn't find anyone in the northeast. So we flew down about a month or so after his diagnosis to Arizona, and met with a doctor there just to just to feel like I wasn't going to harm my child, because the the dietitian was basically like, you're going to starve your child, you're going to you're going to affect his development. And, you know, going back to the research, I found a study about children with epilepsy that were on a low carb diet. And they didn't have they didn't have a study on it on any developmental impact. But I brought that forward to my, to my endocrinologist. And to his credit, he said, You know, I did some research on that. And I'm going to contact the scientists who did the study to see if they had any developmental issues as part of it. So I really pushed my team to think outside the box and have a different dialogue, because I just wouldn't put up with it. I was just like, I'm not having this discussion with you. Like, I'm not giving my son 90 carbs. I feel like, you know, for three tablespoons of rice is an appropriate amount to give him. And plus it's not working like we weren't, we did what they said. And it was, he was still out of control. So it was just like, a pair. But
Scott Benner 38:41
no, it's funny doing you, when you what I just heard you say is just something you hear all the time you there's a nutritionist in front of your somebody in front of you, they said like basically, look, I have this laminated card here. And what it says is 90 carbs. So I was told that this is for nutrition. So obviously, if you don't eat the 90 carbs, your child's going to suffer from malnutrition. And so what you're what you're faced with, is maybe not bad information, but information that's not completely thought through properly by the people who are passing it on to you. And that's, that's tough, because what I what they should have said was, hey, listen, if you know, a little bit less rice is working for him, then we'll keep track of his growth. And we'll see like, you know, because they can do that curve, and follow and follow that curve. And as long as they see growth and you're doing well. Yeah, you know what I mean? Plus I really dislike the the the concept that comes from and I just mentioned this the other day, and I'm gonna say it again like this, and I'm because these episodes are getting out of order. I'm confused at this point. But, um, but I don't like the idea that, you know, when when somebody says you do this, and if you don't do that you failed, you know, or they decide they can't figure out how to motivate you properly. So then they try to shame you into doing it.
Karina 40:00
town, that's awesome to hear. That's my favorite. I'm like, Are you telling me I'd like just so in Canada, we have 12 months for maternity leave. And so he was diagnosed at 10 months, I'm supposed to going back to work in the in two months. And we lined up our daycare daycare was like, you know, I don't know, if we can take him anymore, we're not prepared to have this child in our care. So all this stuff is coming crashing down. And I had a finite amount of time to get everything organized to the point where I, you know, I could leave my child who I don't even know how to care for you, with someone else. And, and then, and then on top of it, they're like, oh, like, I heard starvation ketones, and I'm gonna harm my child's development and cognitive issues and all this stuff. And I'm like, Whoa, my head is spinning. I don't understand how you can look at my son's diet. And he's, he was at the time, like, again, before, like, I was feeding him this way. You know, I had to plan to feed him this way anyway, but he was having beet greens and everything was like, here's some, some spinach and everything was homemade and holistic and, and so he was already doing that. I'm like, you're I said, How can you look at my son's diet? Who has five to 10 different food items, every single meal? And you're telling me that this isn't healthy? What child Do you know? Be greens or almond pancakes? Or, you know,
Scott Benner 41:17
here's my question to you, right? When you're when you're providing that much nutrition for your child. And the nutritious is the nutritionist is telling you that the difference here is rice. You know, you need without more rice, you need more at what? I want to ask you I want to be delicate, cuz I'm not I don't want to shame you. But why didn't you just go? Why didn't you just nod your head and go, Okay, okay. Okay. Okay, I'm gonna walk out and just do what you're doing.
Karina 41:43
Yeah, Bo does that he's like, why are you arguing with her? Just nod and say, Sure. And I'm like, because I want her to understand she's, she's not giving the right information. I was like, was almost like my duty to educate her to say, you know, have you ever scooped out 90 grams of carbs on a plate and divided it among three meals? Have you ever done it?
Scott Benner 42:01
Like what I would say what I would say in that situation is I will tell you that I feel like this is not good advice. I'm not going to be taking it. And I really wish you would reconsider giving it to other people.
Karina 42:13
Yeah, yeah. And I think at the time, like that was when we were first. So the first so that we get we get released after into diabetes day care at the hospital, again, really great program, really, you know, overall, really great tools. But there's some elements that obviously weren't effective for me. But we get released in there and they order but I finally get the crib in the room and they order they order his lunch, and I just been in the hospital ordering in the hospital, you basically get a menu and you could order whatever you want for your three meals. So I was ordering him salmon and steamed vegetables. So I know that they have it at the hospital will be the same kitchen that they order from. So his first meal that he gets delivered to for him out of out of DK and out of the hospital is the dietician had ordered macaroni and cheese, a white roll and milk. And at the time, I was like I know funny. I know. I'm like, Oh, he's gonna love this. You've never had mac and cheese because I hadn't. I still so exhausted I hadn't. I didn't do any of the research. I haven't done the research yet to understand the impact of curbs, on his blood sugar. So this is what they give him. I was like, so afterwards, I was like, Oh my gosh, this is a person who's giving me dietary advice. They ordered him mac and cheese. And like, what the hell and he's 10 months old, but he doesn't eat a bowl. Like, but there's no there's not even a vegetable in the plane. It's really
Scott Benner 43:37
super interesting, to be perfectly honest. And, you know, I mean, there's there there are three things that you know, I wouldn't mix with each other if I if I didn't have to, you know, not that Arden doesn't eat white bread. She does not she hasn't had macaroni and cheese. I think she had it this week, we'd like chicken. But you know, and milk. She gets mostly milk from from cereal and things like that. But, but but the point is, is that if you put all three of them together, I'm fairly adapted bolusing and I would look at that and go Whoa, boy. Like, yeah, let me figure out how to do that. Because that to me seems like it requires a lot of insulin. And and I don't have your 10 month old doesn't have a glucose monitor at that point. It's a it's a leap to tell me Hey, let's really carb up here and but I think what you're what you're seeing is, is that they weren't going to be that aggressive with the insulin. So the goal was maybe to tap maybe maybe the goal was to teach you Hey, look, don't restrict anything. It'll be okay and and the blood sugar is going to get high and it'll come down later and there that is how people that some people think about it that way.
Karina 44:47
Like I said, like we until I listened to your people this influence podcast, the concept of treating the high wasn't there and I like so at my three month appointment as I mentioned, I sent them like and I know And I think I said before you're like, I just don't tell. All right, we just don't. Most of us don't tell her and acknowledge what we're doing. We just got to say, yeah, this is great. Yeah. Thanks for the advice and move on and just continue on with, you know, our Pre-Bolus thing
Scott Benner 45:12
would be my no play when I tell him to do that. I'll do this. How did you get this like that? Oh, I did that. We don't recommend that.
Karina 45:20
Don't Yeah, that's interesting. That was mine. I just my nurse, and she's like, well, Kareena, that's stalking. I'm like, Yeah, I said, You know what? I said, I will not tolerate a high anymore. I'm done with it. And she looked at me like what? And I said, I'm sorry. So I said, I'm not I'm not doing it anymore. Like we can't get his agency down to where you want it into that safe range without doing this. Like, it's I think it's virtually impossible. You cannot pull it. It's very
Scott Benner 45:45
afraid of it. If your blood sugar is at this for this amount of time you're a one sees going to be this. So having a person tell you look, macaroni and cheese, don't worry about Pre-Bolus. And I wouldn't even bother if I was you.
Unknown Speaker 45:56
Baba. I didn't even tell us about that. I had no idea.
Scott Benner 46:01
Don't worry about it. Yeah. Why is your agency not lower?
Karina 46:04
Yeah. And I'm like, so you're a bad doctor? Is the thing is like, there's so there's so smart. I just, that's my mic. I'm like, do you need more parents in the program to help? You know, with your program development, I don't know. Like, it just is so shocking to me that we're expected to control everything with carbs. And carbs. To me, like, for a long time was a big bad four letter word. And so again, listening to your podcast, and how free you are with, you know, allowing art and to have, you know, quote, unquote, a normal life and normal food choices and things like that, like I you know, it helps me ease back a little bit. I'm not fully there yet. But I do believe like, as soon as I know, I really do believe in it. I don't
Scott Benner 46:51
know, I think I think it's coming for you too. I just think that, listen, I think you're sabotaging yourself a little bit. But I think you're getting to it. And I can't I can't fault you. I want to give you I want to tell you two simple, like kind of like colloquial ideas. So first of all, my son plays baseball constantly. And there's this thing that happens in coaching, where if you're good, coaches want to be able to at some point, say they had something to do with it. So even if you're having success, you'll you'll see somebody come up and say, Hey, you should try this, because they want to put their stamp on you so that when you succeed, they can even if it's just in their own heart, they can say hi at a part of that. Yeah, you know what I mean? And so here's something I taught my son a really long time ago, and it is definitely the smile and nod. You just go absolutely. I understand. Yes. Okay, I'm on it. I got it. Thank you, and then walk away and do what works for you?
Karina 47:46
Well, I have a master that she needs to She needs a smile and not the talking, she needs to smile and nod and back out of the room.
Scott Benner 47:53
Oh, by the way, because keep this in mind. Let's take it a step further. Your nutritionist has a job. Yeah, being a nutritionist at a hospital. If what they understand about nutrition, or what they're saying is not valuable, then what are they doing there. And at some point, I'm protecting my job, I was told to tell you this, I get paid to tell you this, I'm telling it to you.
Karina 48:17
The dietitians of the hospital or government directed though they do have to follow the Canada Food Guide. So until that changes, I don't know that their nutrition space is going to change. And they do say it doesn't matter. Like literally and I'm sure you've heard this as well. And it doesn't matter what you feed him we'll just match insulin. Oh, by the way,
Scott Benner 48:35
I don't have a problem with that. But the time the insulin, you can't just the amount of it doesn't count. You don't I mean, I'll give Arden almost anything. Yeah, but it's not just the amount. It's not like, Wow, that's a lot of carbs, that's gonna be a lot of insulin. It's, Wow, that's a lot of carbs, that's gonna be a lot of insulin, I really have to time this correctly. So that when these carbs are trying to make their effect on her blood sugar, that insulin is fighting back and equal and, and and specifically timed way. You
Karina 49:05
know, it's so brilliant. Like I said,
Scott Benner 49:10
it's literally not brilliant, it's tug of war. If you pull on one side, and I don't pull on the other side, you fall over, and vice versa. And when we're both pulling equally, that rag just sits in the middle of that rope and never moves you can pull forever and it's not going to matter. You just need the insulin and the carbs to be pulling at the same time. And you need them to get done. At the same time or in reasonably speaking. Same sight. Yes, it's very basic idea. I learned it by watching the Dexcom graph. You know, I just I was like, okay, the insulin went in here. And she got low. But then, you know, 25 minutes later started getting high. So that means that the food didn't start really hitting her until 25 minutes. What was that meal? Oh, you know what, it was a real heavy meal. There was no simple sugars, nothing that would affect her very quickly. It's stuff that took a little long time to it. And then She had like a like a high later Why? Well, because they It was a, I don't know there was a bagel on their pretzel. It's still sitting in her stomach and dissolving slowly and giving off sugar. And so now my insulin is gone, but the bagel still being digested. Like like then I was like, wow, okay, so maybe I should do an extendable stretch that insulin out a little more because I don't need a big burst of insulin up front. There's no simple sugar. So let it go in slower, or if it's a mix of stuff, that's more simple sugars that your body's going to pick up quicker. And you know, and it's a long lasting then maybe what I need is more insulin and habit extended. And it just started working I I gave her Ardennes. Yesterday her lunch Pre-Bolus is going to be very similar to what it was. It's going to be today because right now today, her blood sugar is 66. So it was 71 while we were talking it was 70 right before you and I started talking. We cut her bazel off for a half an hour. But we were still have some insulin leftover from a high blood sugar from early in the morning. So too. Early in the morning before she woke up. Arden's blood sugar got high. And I didn't wake up for the CGM. So I had to address a 200 a big budget or a 250 for us, which is really big. So I gave her a bunch of insulin. But I didn't give her enough to like, crash it I needed to come down slowly because she was on our way to school. So she's been drifting down over these, the first couple hours of school, she got the 130 to 120 to one to one and then 90 and 80. And she got the 75. And I said, Hey, shut your bezel off for half an hour. And I did it too late. So she hit 60. sick, or she hits 70. And right there. And I sent her a text while you and I were talking and she's got like some fruit snacks. I told her to eat half the pack of them.
Unknown Speaker 51:51
3.9 Yeah,
Scott Benner 51:53
right. And so so
Unknown Speaker 51:55
arranged by
Scott Benner 51:56
7070, we try for 70 to 130. So and by the way, too, she hasn't tested she's at school, it's possible she could test and she's really at five, because she ate snacks right now and the CGM is going to be behind by a couple of minutes. And what I'm watching is, is the very gentle bend at the end of the three hour line and it's bending back up again. Yeah, so there's part of me that thinks in one more minute when this thing cycles again, I'm going to be able to tell you her blood sugar's a little higher than this, which is an indication they're either just still going off. And I don't want it to go flying up, because 20 minutes from now I need to give her insulin for lunch. And so the concept here will be is if she's still in the 70s 20 minutes from now, I still have to give her I'm pretty sure that her her lunch today is going to need nine units of insulin. And so my, my concept here is, is that I'm going to give her nine units events in 20 minutes from now and her blood sugar 70 or 75. I'm going to extend it out, I'm going to give her zero percent of it upfront, none of it. And I'll extend the rest out over a half an hour. so that by the time she sits down and eats the first four ish units have been put in, but they're not even working yet. Yeah, so she starts eating with a 75 blood sugar. And just as the food starts the header, the insulin starch store. And that's it. It literally it's very simple, right? It's very, very simple.
Karina 53:21
We don't have a pumpkin. So like that is blowing my mind. Like, oh my god, I'm not ready.
Scott Benner 53:26
But it's very simple. Because Because it because I've done it a billion times you might have listened to it and been like, yeah, those words are simple. But how do I make that happen. And the way you make that happen is experienced by seeing it happen over and over again till you trust this is what happens in this situation. Once you can trust it, then you can work with it. And by the way, it'll go wrong once in a while, once a year, it'll go wrong. And when it goes wrong, we get alerted. And then we do something else. You know if if me being all like bold right now with her blood sugar sitting at 70 get sideways on me in the next 10 minutes, and she's all the sudden diagonal down in the 60s. So then I'll have her drink some juice,
Karina 54:08
while we're so much more in control with the lows now like, again, because I listened to you and like we can treat them It's trying, it's cutting that nudging concept, which I love. It's just trying to get that arrow to go horizontal. And then we can take a couple breaths and see where we're going and you know, figure out the plan.
Scott Benner 54:27
And a lot of it's by the way, was great thanks to if you go all the way back to an episode called Rick lives on a boat. Because I was talking directly he lives on a boat. And I'm not that imagined, make up the title of the podcast episode. But he said you know he's a guy I've read I found out that people who don't have type one diabetes, their blood sugar goes down into the mid 60s and stays there sometimes for an hour. And
Karina 54:51
I said what are we comparing this to like? What is a normal person without type one What are their blood sugars do and they don't give you that information. So I like I really font of context. And I, like I like, you know, even with my agency I was like, but because they were one of the first day onesies, we had, I think it was, I think, I don't think we've ever gotten more than eight and a half. But I said, you know, but they have, but that's artificial, because he's had so many loads, it's going to bring his highs down. So why are we even talking about this? I'm an endocrinologist. Like, yeah, you're right. I don't like but the ANC is an indication of his overall health. And it's artificial. So what are we doing here?
Scott Benner 55:27
Well, I have to I have to complain to anybody that heard you just say that I really want to tell you go back around Episode 100. somewhere and listen to all about a one C with Jenny Smith CDE. It is a really great episode where we all mean a certified diabetes educator that I love and trust, beyond trust, we just talked about it for an hour and a half. It just it you're 100% right context, it's important. It's very important. So you know, you know, it just, you need those tools. Right, I was going back to what I was saying, like, what, what makes that easy for me, it's that I know how the insulin works on my daughter, and that I know what the food's gonna do there. And then I just balance those two things. And I put them together, I've tried to explain it a million different ways over the podcasts. But in the end, you're just lining those two things up so that they work at the same time. Sometimes I think about it as like the scales of justice makes them both scale sides have a hole in the middle. And I'm trying to fill them with sand and keep them balanced at the same time. Yeah, and so you put sand in and then you have to put some in the other side, then it runs out, you just sort of keep putting it in you just if you put it in the right spots. The scale never moves, you know. And so you just have to add carbs, or add insulin or subtract carbs or subtract insulin at the appropriate times.
Karina 56:45
Yeah, I feel so much like today, compared to last year. Like, it just didn't have control. And he'd be high and we didn't have any tools to do anything. And I'd listen and read I'm like, but we weren't told to give him extra injections. You know, he's like, maybe it's because he's on a pump. But I realized now it's because they were you know, obviously afraid with his age him going so low. But now that we have the CGM I'm so much more able to you know, take those leaps and understand that I have it is in my control to correct it. I can, you know,
Scott Benner 57:14
there is genuinely no nothing wrong with being very cognizant of that aware of it and and respectful of it. But you can't be afraid of it
Karina 57:25
now and I even changed his his his mornings before were much broader. And I literally like no, I'm so confident. Now I'm going to tighten that up. I'm not I'm not I never keep up. The lines never seem to stay in there for very long, but they're they're like they're tightened. I just have to get to the point where I can get that more balanced line. But I want
Scott Benner 57:45
to say Good for you, by the way, because far too often. I hear people say, Oh, I have a glucose monitor. But you know, I have the high threshold set at 300. Because I don't want that thing bothering me. And I'm like, wait, what's it for then? Yeah, it is. So it you need a little Hey, your blood sugar's getting out of range. Handle it now before later, it's so much simpler to stop, you know, a diagonal up 130 arrow and get it back to 110 than it is to be told an hour from now. Hey, wow, look, your blood sugar has been climbing for an hour and a half and you're 250 now
Karina 58:16
what am I gonna do get more sleep like I don't get any up and being productive, that
Scott Benner 58:21
you're gonna get more sleep one day, don't worry. Just don't listen, here's the goal. Don't die before that moment. And if you were don't go crazy and get out your car like Tiger Woods, start driving around or something like that. Because if you if you can, if you can hold yourself together until that's about you will get more sleep.
Karina 58:37
So I just read this morning sidebar, that Tiger wasn't actually driving, he was asleep in the passenger side and he still got to rest it sounds like that's a really bad luck
Unknown Speaker 58:47
to get out of that, by the way.
Karina 58:50
So I have two questions for you. Because we have a coach, we often have minimal ketones. And our dietitians always freaking out and like not giving enough because they know my mentality. They're like you're just not giving him enough carbs. I'm like, but we are he's getting, you know, rice or or sweet potato or you know, some sort of car like that with every year,
Scott Benner 59:14
your dietitian thinks that your son has ketones because of like starvation ketones, like he hasn't eat enough food and he's in ketosis.
Karina 59:22
But because of my previous you know, arguments with them, I think they just immediately go there
Scott Benner 59:28
when I'm asking you does he eat on a regular schedule? Oh, yeah, other sock carbs and what he's eating? Yeah. I mean, are his blood sugar's a little elevated?
Unknown Speaker 59:39
Sometimes Yeah,
Scott Benner 59:40
I think that's probably that.
Karina 59:42
Well, then why don't they like so they accuse me cuz I'm like, does everyone have no ketones? Really? Like no one has everyone has zero? Well, I
Scott Benner 59:49
think I think you know, I think ketones don't. Listen, they're dangerous, obviously. And they're a sign that you know, they can be a sign of dks coming which is I think why the doctor is so crazy. about, you know, talking to you about them, I maybe go to a different source to get the answer not for me, obviously, because, you know, the extent of my day, so far as I've cleaned apart in a panel, I'm planning on coming along later. So, but but you know, go to somebody who really knows, because if he's getting enough nutrition, and it's not that then really what your concern should be is, you know, do you have enough insulin? You know, maybe maybe you're not using enough slow acting insulin because you're not on a pump. Right. And so if you find yourself, you know, injecting a lot to affect things. That could be because you don't have enough background insulin. Mm hmm. And if you don't have enough background insulin for all day long, then you aren't going to see ketones, I imagine.
Karina 1:00:46
And I think it's really hard with him because he's so we have increased his level Mayer in certain instances, and at one point, his daytime living where we'd like to unit is nighttime loving, living room with a half a unit, you should
Scott Benner 1:01:00
give it to him every 12 hours.
Karina 1:01:02
Exactly. Now, now, his nighttime one is up to two, and his daytime is still running a bit higher at two and a half. But it's just been like, you know, everyone talks about growth spurts, and whatever else and you know, so I think it's just gonna be trial and error, and I need to be comfortable. And I'm trying to be comfortable in that, you know, uneasiness. Oh, no, it's
Scott Benner 1:01:24
not, it's definitely not easy. And you're not the first person I've spoken to, by the way from Canada, who has issues because of the way the healthcare set up and what they're allowed. They're very stringent about what they're allowed to say what they're not allowed to say. And it's different down here. It's not, oh, the government told me to say this. So I said that down here. It's, hey, we have we're protecting ourselves from litigation. That's not what we recommend. Yeah. And, you know, when when a doctor tells you, that's not what we recommend, many times what they mean is, I have a better idea of what to do. But our lawyers have told us not to say that. So that's not what we recommend. And you're in a very similar just Canadian version of that, you know, this, this is what the laminated card says. So
Karina 1:02:09
yeah, yeah. And I mean, this is what is covered, this is what's not covered, and you just sort of make those decisions, I guess, based on what's available to you.
Scott Benner 1:02:18
So are you thinking we are Wait, we're up on an hour? Are you thinking about a pump?
Karina 1:02:22
Yeah, and again, our only hesitation, you know, as I mentioned in the in the top app is he's got so little real estate on his little body. So that's been a mental issue for us to get over. And also we sort of wanted it to be his decision. But I think you know, the fact that there's the Omni pod, and there's not all those other contraptions that's much more appealing to me. So I think you know, we've gone to the car cast in Toronto, I don't know if it's Canada wide, but in Toronto, you have, in order to get a pump, you have to go to carb counting classes, which are not very helpful, and also pump to pump classes. So we've gone to the carb counting classes, and then we just have to go to the pump classes in order to be qualified to get the pump. So
Scott Benner 1:03:07
let me give you some advice, which I don't often do both of the things that you're concerned about, you won't be concerned about after you died. So the real estate on his body and you know, like he said, if you're going to go with a with a tubeless pump, then you're not going to know things are going to be hanging off he's not gonna have to wear like a belt with his pump in it or something like that. You'll be much happier afterwards. I you can go back and listen to any number of these episodes when people answer those questions. And I don't know what I waited so long for I can't believe I was scared. You know, I felt ridiculous later because I made such a big deal out of it. You know, Baba, everyone says the same thing. And by the way, some people don't say the same thing. Those people don't those people don't have pumps. But I think that I think that the the odds are with you that you're just gonna you're gonna be fine. I would try to you know, because I'm looking out for your, your, your spirit, not your husband obviously but your significant other, but I'm looking out for him by telling you I think that this is just another area where maybe you're maybe you're your own trigger. Just
Karina 1:04:07
fine. I will say is more him than me.
Unknown Speaker 1:04:13
Not to be confused. He
Scott Benner 1:04:16
looks at you like you're crazy. Of course he's not perfect. It's just it's another one of those. It's you know, now that becomes a This isn't how I imagined my kid.
Unknown Speaker 1:04:29
Yeah. And so
Scott Benner 1:04:31
tell them to trust. Try to imagine them like that. And then everything will be fine.
Karina 1:04:35
Yeah, we moved CGM. So CGM, like the nurse told us it needs to go on a stomach because of his age. And for the longest time was like since we've had it. I mean, it doesn't seem like that long. But it's, you know, a day a week goes by with type one diabetes, and it feels like months. So we've only had our CGM for Korea since February but we finally just I saw someone else on Instagram had had this child similar age to Mac and she had His CGM on on his arm and I had to start and said, Hey, I said, you know what's with the arm? Like, you're good to do that. But you know, after all these questions like, Oh, yeah, we've never done the stomach. And so then right then I said, we're changing. It
Scott Benner 1:05:13
has never been on our stomach. Yeah. By the way, Oh, where's ours on her hips? Oh, man. So there's sort of that I've described it before. But real quickly, there's a, you know, kind of a space between the point of your hip and the rail, the roundness of your buck curve that's a little flat. And she just puts them there with the, with the wire headed towards the cheek
Karina 1:05:39
might not fly anymore. So I'm trying to feel
Scott Benner 1:05:42
like I get where it used to be. But you know, there's that spot there. So between the and and Arden's insanely active and slides playing softball all the time, and we've never ever had an issue with that, as a matter of fact, I've only had one ripped off in, in recent or any memory and it was because her and my son were messing around and my son reached out and like quite literally grabbed her and grabbed the her shorts and the whole break at the same time. And she gasped at him and then we had to get off. So anyway, um, thank you so much for coming on. I genuinely at this point think that you could come back a year from now we could just call the next episode calm. Kareena. I, but I, you know, listen, I want to say again, I'm not a therapist, obviously. But But you, you know, you I think you are so close to making a leap for yourself. I think if you trust yourself a little more, and don't worry about the future that you can't control and stop trying to help people that, aren't you? Yeah, I think you're okay. After that. You know, I think you won't be arguing with your doctors, you won't be searching because you know, the search for a cure like I did. I didn't say it to you back then. But you were talking about how you contacted everybody who's looking for a cure, here's what I think about a cure. There's probably never going to be a cure for type one diabetes, but there could be. And I live every day, hopeful that there is but I don't live every day expecting that there will be. And then the last part of it is I never think about it. Because if someone cures type one diabetes, it'll be on the news, I'll find out. You know, you know, I mean, like, so searching for it. It's not like it exists, and you haven't found it. You know, and so I think if you can take sort of some of that, some of that, like searching out of your head, it would be really it was helpful for me, I'm not, I'm not judging you. I'm telling you for experience, I used to get up every morning, and scour the internet for ideas that diabetes was about to be cured, or that it had been cured. And just somehow magically, no one had told anybody, you know, and it's just obviously not the case.
Karina 1:07:54
So funny cuz I stopped. Like, it's funny that you say that, because I laughed myself not too long ago, I said, I remember when I used to wake up and do that exact thing or spend all night, just researching. And if, if there was a news article that came out a few months ago, with the cure, I would not know about that, because I just haven't done it. I haven't done any looking. It's, you know, I'm happy if someone reaches out and says, Hey, by the way, but you know, the same thing that you just too busy doing your own life, like you're living your own life. And
Scott Benner 1:08:24
there's also something to be said for the fact that there's something called research season where researchers need more money. So they find people to write articles about how great everything they're researching is, so they can get more money, which by the way, is needed. And I'm fine with all that. But it causes it can cause a newly diagnosed person or a person who's new to the any disease to get on reasonably hopeful all the time. I know they cure diabetes, the first time I found out they cured a mouse of type one diabetes. I was just like, oh, so this is just about over, you know, and then and then I realized that many money mice have been cured of a lot of type one diabetes, and it's in no way indicative that something's on the horizon. So yeah, my opinion. I, if you're, if you're thinking on the pod, I'd get one now. And you already have a CGM, and probably in the next, I'd say less than two years, those two devices will be talking to each other and a lot of what you're doing right now will just be gone. Yeah, so So stop trying to fix the future because you don't know what the future is going to be. I'm going to give you my favorite quote about this and I just gave it to a friend the other day in a private phone call worry is a waste of imagination. You are just imagining what you think is going to go wrong you have no way to know if it's true or not.
Karina 1:09:43
are both gonna love you make See I tell you this all the time. Don't worry about the future.
Scott Benner 1:09:47
Just look at him and go I know you think I'm crazy. Shut up. Well, listen, I you're really delightful and I'm I'm super glad we did this, but I have to you know A couple of seconds I'm gonna do Arden's pre balls, and like I said, I'm gonna cut the lawn and go grocery shopping. There's a lot for me to do today. Great. So I don't want anybody to be john. But I really appreciate you coming on.
Unknown Speaker 1:10:11
Thank you so much.
Scott Benner 1:10:12
Have a great day. How about Kareena coming on and being so amazingly open and honest, thank you so much for sharing your story. As always, if you're interested in being on the Juicebox Podcast, reach out to me and let me know I'm always looking for people to interview always looking for great stories, always looking for compelling ideas, and just honesty, something that people can listen to and understand, see themselves in so they can learn and grow and live better with type one. If you think you have that kind of story. Let me know. Thank you so much to Omni pod and dex comm for sponsoring the Juicebox Podcast, you can always go to my omnipod.com forward slash juice box with the links to your show notes. For dexcom.com forward slash juice box again, the links your show notes. And don't forget, there's another link in there today. If you're an omni pod user, you're loving the product and you'd like to leave a Google review. Super simple to do on the pod is looking for your feedback. Hey, if you're still listening, the show is pretty much over. But don't forget to subscribe to the podcast if you're just listening for the first time. Find me on social media and remember that I'll be back next week and every week with another episode.
Unknown Speaker 1:11:22
Thanks for listening
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