#156 Worry is a Waste of Imagination
Scott Benner
Corina is the mom of a small child living with type 1 diabetes....
She shares her fear with Scott and they talk it through
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello and welcome to Episode 156 of the Juicebox Podcast. Today's episode is with Kareena Krishna is the mother of a young child who's recently diagnosed. And a lot of this episode centers around fear. But it's not just about being the parent of a child with type one. It's about so much more. I really hope you listen to Juicebox Podcast is sponsored by Dexcom and Omni pod. There'll be ads in the show for both of these devices. I hope you'll listen to those as well and check out the links in the show notes. You can always go to dexcom.com Ford slash juice box to find out more about the best continuous glucose monitor I've ever seen. Or to find out more about tubeless insulin pumping, go to my Omni pod.com forward slash juicebox.
Want to thank you guys again for listening and for sharing the show. I can see it in the downloads, very much appreciated. Please know that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before being bold with insulin.
Karina 1:17
My name is Karina and my son Mack was diagnosed with type one at 10 months old in 2016. So he's just had his one year, as I've learned it's the thing the one year type one diagnosis anniversary on March March 4,
Scott Benner 1:35
how are things for you guys? Since the diagnosis have things improved? Or are you still are you in a holding pattern? How's it going?
Karina 1:43
Well, I mean, it's day to day, right? Just when you think you've mastered it, and you never really do it's, uh, it changes again. So I think I'm like, hey, we've got this under control. I know how to control this. And then, you know,
Unknown Speaker 1:57
something happens.
Scott Benner 1:59
It's all gone. And you're like, I
Karina 2:00
don't know what it is. And we're like, what did you do? Like it's accusatory and accusing starts with my, my partner. I'm like, What did you feed him? Why did you give him how much insulin Did you give them? So the battles begin, and he's like, You're crazy. And nothing happened. And we feed them the same thing, something different happens. So I've learned, which is out of my character, because I like to be in control that it's okay that I haven't done anything wrong. And we're just going to keep on finding more tools in which I want to say thank you to you, because I don't think we need to be where we are today without me stumbling upon your podcast. And it's helped us immensely to live in those ebbs and flows and also take back some control with giving more insulin and also easing up on the carbs. I was a big carb crazy and food crazy where it's like he can't have benched. He can have fruit, he can't have rice, he can't have anything. So you've actually helped me loosen up a little bit there too. So I
Scott Benner 3:01
want to hear the thank you from him because he was probably he was from eating some pretty nasty stuff for a little kid, right? He or did he take to the vegetables and things are?
Karina 3:10
He's Well, he's a big eater, which is also a concern because i've you know, it's, it's just like a snowball effect of research. So I started researching that some type one kid, or some type one people have issues with feeling that satiated feeling so they start to eat more. And so I was thinking, Oh my God, he's gonna be obese, and he's only 10 months old. And so yeah, that's where my head.
Scott Benner 3:36
So I have to ask you two things. You said two things in my mind that conflict, right. And and I'm, I'm aware of it kind of hyper so and nobody knows. They'll know by the time yours comes on. But I've interviewed a lot of people recently who have described their significant other as their partner. And I don't usually don't I don't usually dwell into it, but it's your personal thing. But then you said that your partner called you crazy. So initially, when you said partner, I thought, oh, probably lesbian. And when you said Call me crazy, I just when you say crazy, I just went Oh, just not married to the guy.
Karina 4:08
And like, stop calling your partner. I'm like, Well, what are you like my boyfriend? Like we have a child.
Scott Benner 4:17
I just I just brought that up. Totally. show off my my powers of of consideration.
Karina 4:24
Yeah, I think they call women crazy. And it's irritating. I don't think he's physically called me crazy, in a way with all due respect to him, but I know that he's probably thinking it so.
Scott Benner 4:37
Okay, so this is even better. He's not calling you crazy. You were doing something and thinking he probably rightly could call me crazy.
Karina 4:45
Yeah, I'm pretty self aware. I know when I'm a bit of a control. So good for you. Like spinning like I don't know what to do, though. Yeah,
Unknown Speaker 4:54
well, nothing to do with why we're talking but I'm delighted by it. So thank you very much.
Karina 4:58
Yeah, that's a fun layer. So the whole type one thing because you know how how much maintenance there is?
Scott Benner 5:04
Where you quote unquote crazy before the diabetes?
Unknown Speaker 5:08
Oh, for sure, okay.
Karina 5:12
With different things, we would go shopping to buy furniture, and we'd be like literally coming home. And he's like, no, Corinne, I know you want to set this up right away, but it's this time we need to eat. So can we just agree that you will, we'll wait till after I promise, right? When we get home after we eat, we will put it together. And I'm like, I will try my very best. So I like I like to get things done. I want to I just, you know, I want to get it done. I want to figure it out. I want to, you know, solve it, which is why this is such a nightmare with type one.
Scott Benner 5:41
No, I hear that. And so and so I have two questions based on that has has come we're gonna continue to call you crazy. And by the way, this episode is so close to being called crazy. Kareena, I have no idea. Sorry, but I'm leaning that way right now.
Karina 5:57
So I'm playing around near the end,
Unknown Speaker 6:01
swinging around.
Scott Benner 6:03
So did your knee. So there were some things used to be more concerned about than you are now. And it's sort of shifted for you. And at the same time, looking into your personality and the idea that you want to kind of figure things out and complete them and those sorts of things. Has that did it initially drive you in a bad way? And is it? Is it a better driver for you now? And if so, what changed between that and now?
Karina 6:27
I think I've always used it to be a positive thing. Like I said, I'm pretty self aware. So there's not much that you're going to tell me that? I don't already know. I don't mean you personally, I mean people in general. So I think that, you know, I have learned in the past how to either explain more, I have a stepdaughter that's 13. So we learned pretty quickly about not just telling her No, no, no, but just to say, Hey, we're saying no, because of this, this and this. And that extra explanation doesn't make up for the craziness. Again, we're going to try and find another word. But it doesn't make up for that. But it at least helps give it context. So I think that I have you know, the benefit of of the benefit of the research and listening to people that are going through it like yourself, has given me the context which I needed. And that helps because it gives me that sense that I don't have to do all the work myself. I don't have to do with every ounce of research.
Scott Benner 7:25
Now I think that it's it's also when you're an adult, and you've You know, you're pretty far into your life at this point, not much of what happens in the course of a day. Do you not have context for right and so so nothing seems too surprising or off putting and most things you know, that are right, you're like, Oh, I know what to do here. And then someone throws something in that not only do you have no context for it, you don't even know the words they're using to describe it. and ended up ended up here is very attached to the life and death decisions you're gonna make about a 10 month old.
Karina 7:55
Exactly. Yeah. And that's the thing too, like, I think the other part is, is I'm used to, I have no problem questioning. And I probably question a little bit too much. But you know, when the medical team after is diagnosed after max diagnosis, told us what to do, I thought we do this. And we feed them this, and this is the outcome. And that was never the case. So like when you start to do the research, and you understand like, hey, you're supposed to get these results, and you're not getting them, then I start to question what I'm being told. Yeah, so yeah.
Scott Benner 8:33
So what I'm hearing is really base, it's a basic thing that happens to everybody they gave you. They give you basic tools, like stripped down tools and said when you do this, this will happen. And and that never happens. And when it does happen, it almost seems like a mistake when it happened. So right doesn't it almost seem it almost seems like it not happening is what's supposed to happen. When it actually goes the way they said you're like, oh, that How could that have been weird? You know, like, how did we actually end up in the right place? It's um, it's, uh, I still I struggle with it a little bit like I still hear myself from back in the day when I think like, I get that they try to walk you through it slowly. Right? I do understand that. And then the me that's lived through this podcast for over well over 100 episodes now realizes that a lot of people can hear this information in a more compressed way and absorb it and make it actionable. It doesn't seem like that thing that I was taught 10 years ago stands true for everybody. And by the way, I'm assuming it's, it's right for some people. But I just think that the doctors have gotten to a point where they just kind of lowest common denominator the whole thing. So if one out of 10 people they see during the day doesn't have the I don't know the the confidence or the ability to absorb everything at once and put it into practice and in a fairly short amount of time, then they don't bother telling it to anyone.
Karina 9:56
Yeah, I mean, and that's exactly true too. Like, we will You know, we were massive in DK and in critical care, and we get released into the regular. So we're in Toronto at the SEC Children's Hospital, which is an amazing hospital, my nephew, coincidentally and his cousin until but had a heart transplant. So he was there when he was an infant. So look, we know the hospital very, very well with the teams there are amazing. Now they've saved both, you know, my nephew's life and my son's life. So we're indebted to them. But you come out and you go into diabetes, daycare upon discharge. And you know, I hadn't done research at that point, because you're just done like, you know, seven days ago, my, my son and I just had a cold. No, we didn't have diabetes, we had a cold, but this was it. Like, that's why he wasn't eating. That's why he was sick. And then now he's got type one. And I'm you know, stuns, we're exhausted. And we go into learn how to care for our child, and they're saying, You're going home at the end of the day, and you're going to be giving your child needles and I was like, You're insane. We're not leaving, we're staying here. I don't want to go home. So and then you learn like only 1% of the population of the type one diabetic population has it has diabetes this young. And so then even in the hospital and critical care, he was, we were so in critical care. They have one nurse per patient, and he was only in critical care for a couple days, three days maybe. And at one point, they so they've taken him off into Venus and gave him his first injection, I think I think it was that. I can't remember if it was a game or what it was. But anyway, I think it was that he they given him his first injection. And then he was going low to the point where she took his blood and he was 1.9. And his eyes are rolling back. And I'm like, we're losing and we're losing him. And she's like, I know and you never see critical care nurses panic ever. And she was losing her mind. And she was looking for the code button. And I was like, What the hell is going on? Like, you guys, you guys should know this. Like, what if my son going low? Like so then it sort of gave me the feeling like they don't get this many children this young, which they do. But that was my sense. I was like, You don't know what you're talking about. Because everything you have is geared towards an older child. Even in our diabetes, daycare, we show up and there's like, play toys but there's no crib I'm at my son's 10 month old like what we can't sit here for for the whole day. Like he needs to sleep. Like the lights are all on it was just like,
Scott Benner 12:28
it was like it didn't feel like it was it was kind of focused on kids that that small and then it seemed like the care was also going in that direction. So do something for me real quick for the rest of us who don't live in Canada. what one can you put 1.9 onto my scale?
Karina 12:44
Oh, yes. Okay, I meant to do that I was gonna do all my calculations for you. I was gonna be so impressive to you. But anyway, a month to 1.9 times 18 is 34.20.
Scott Benner 12:57
By the way, people there's gonna be bleeps In this episode, we're not gonna be able not to curse apparently.
Unknown Speaker 13:02
No, that's okay. Everyone's flashcart to a gap in time.
Scott Benner 13:07
It's the medium thing probably. Well, you know, it's funny. You said you think if you're not sure if it's coincidental that you had a family member in the same hospital? And I thought because of a Canadian, Alanis Morissette. I don't even understand what ironic means anymore. So
Karina 13:26
we've had it wrong the whole time. But I'm pretty sure it's not coincidence in this instance. I guess bad bad luck.
Unknown Speaker 13:35
Bad luck. Yeah.
Unknown Speaker 13:37
Did they do with those kids that are
Unknown Speaker 13:41
gonna stop talking?
Scott Benner 13:44
Here's a great reason why I love on the pod. So their ad this week that they pay for, they want me to tell you this. 90% of customers say purchasing decisions are influenced by online reviews. Because of this, it's important to encourage reviews on channels like Google. Moreover, positive reviews are fantastic, because it helps them to understand what they're doing, right. But reviews that are critical, that help them understand what they're not doing right, or what they could be doing better are also really, really valuable for them as a company and for you as a user. So they don't just want to hear that you love the Omni pod. But if you do, please reach out and let them know. If you have something you really think they need to understand something that could help you or other people that use the tubeless insulin pump, share it be constructive. So on the pod is soliciting reviews through Google reviews, and I'm going to put a link in the show notes. If you use the Omni pod insulin management system for yourself or for a loved one, please consider taking a brief moment to write a Google review. I'm going to give you the link in the show notes. Again, like I said, it would be easy to be cynical and say this guy's getting paid to say this. Well, they've been using this insulin pump forever. But I'm telling you in my heart, I would never let someone put an ad on this show that I didn't believe in and trust me Other people have asked, and you don't hear their ads here. You can always go to my on the pod.com, forward slash juicebox. To try a free no obligation demo pod today. When you do that, they'll know you came through the podcast, that link is also in the show notes. There's no way to beat free with no obligation. I absolutely love on the pod and I think you will to my omnipod.com forward slash juice box. You can also always use links that are at Juicebox podcast.com, or in your show notes.
Karina 15:30
Don't forget to leave that review. Because I'm supposed to take my kid home and be able to help him. So for a long time, it was the lowest that scared me so much. Because I I was just like, I saw him nearly passing out from something that a medical professional did. I'm like, Oh my gosh, so for a long time again until I started listening to your podcast. And the one that was, oh god, I kept my people with insulin was the game changer for me. I literally, I didn't have time, you know, there's only so much time in the day, I work full time. I go to school at night. So I just don't have much time to read and get stuff. So I literally cram my education via podcast on the way to work. And then I recognized Oh, great. I can also listen to podcasts while I run, which is a beautiful thing, because I forget that I'm actually exercising and in pain. So I love it. Yes, thank you so much. But the people with insulin, I literally came back to my brain. I'm like, okay, I said if he's above 1212, which is? If he's above that seems high, which seems obvious. But if he's above 216, we're stopping it like I'm not letting him go that high. Whereas before, like my doctors were like you don't treat him you don't treat a high at all? No, it was like here because of the stacking, which is one of the questions. So back to my running. So the problem with the running was I have all these questions while I'm listening to your podcast. And I'm like, Oh my gosh, I don't have a pen. So I started using Siri to take my notes. So I'd like literally write down notes so that I could go back and figure out questions I could ask you.
Scott Benner 17:09
Thank you. I I'm starting to feel more pressure about the podcast now. But no, no, seriously, I think that first of all, I think that's amazing. And I think it's you know, I think it's it's indicative of the part you're in right now. You don't need me like everything brings up a new question. And, and and everything is, is scary because the doctor told you to do this. And then now you're out in the community and you're hearing while other people do this. And you know, now, they tell you not to stack insulin for a very simple reason, because you can't tell if it's if you've stacked it up and it's all going to start working at the same time and crush your blood sugar. I have you know I say all the time, I'm very much more free with it than I could be if we didn't have a CGM Dexcom CGM. So I can see my daughter's blood sugar when it starts to fall.
Karina 18:05
Yeah, we didn't start that until we had the CGM. I didn't obviously feel comfortable because I'm not I mean, we've had times where we've poked him before the CGM, like 22 times,
Scott Benner 18:13
you just get out of your mind, you still can't figure out what's happening. And so you just you feel like you need to keep going. Well, so you did get you, you did get a Dexcom are you did you get a different? Yeah, no, we
Karina 18:23
got the Dexcom. We, I think, again, listening to your podcast can help give us a little bit more context of what to do because there's so much out there. And we also he's so little like to put something on his body. That was a big thing for us, like I really wanted, you know him to be able to make those decisions. But we we did a try one over Christmas. With a g4, the G five was announced in Canada yet. And so this past December, obviously, with the same Christmas. So it was we did a trial, and honestly, I haven't slept so well in since he was diagnosed. So I thought for everyone's sake. It was just the right thing to do. And our insurance company doesn't cover it yet. So it's obviously a bit of an expense. But I'm sure that they will cover eventually. And we got it officially about the G five we waited for the we waited until the G five came out in February. And so now we've been on it since i think i think we got it in early March, late February.
Scott Benner 19:21
Can you see his blood sugar right on your phone? Yeah, I'm
Karina 19:24
not looking at it. I'm looking at the calculator, but I'm actually pretty good. I thought that I you know, there's some days where I'm looking all the time. And I'm like, do I call daycare do I call call daycare? And then I just wait for that five minutes. And I'm like, okay, the arrows going the right way. I'm okay. So I do I look. Some days I look more than others. And then other days, I'm like, Wow, I didn't check for three hours. So
Scott Benner 19:41
yeah, and it gets easier. And it's funny because I had a real concern in the beginning when share you know, the feature came up I thought oh, this is gonna burden people. And just, you know, true to form. It didn't. It was something that was something that and I say Trudeau form because I think of things like you know when Facebook changes The layout of the front page for two days people are just out of their minds, why would they change? This is how I liked it, it worked fine, this is gonna mess me all up. And then three days later, I've never once heard anybody say that again.
Karina 20:10
Remember what it looks like, like, we're at an onslaught of information out there. Like, you don't gotta remember that it was blue or white or whatever, people adjust
Scott Benner 20:19
pretty quickly. And it's also a human nature to not want to adjust. And so but but if you want these technologies to continue to improve, you are going to be uncomfortable at points, you know, there are going to be moments when you're like, oh, but I'm accustomed to this. Don't change it. Yeah. But it's cool to hear that that you got, you know, that didn't last for very long. And I have to say, too, I don't. I really don't spend very much time looking at it at all, to be perfectly honest. It's just there when I need it.
Karina 20:46
Yeah. And our daycare has now the best thing for us is that our daycare has it. And it's just we went through another round of training with them to try because there's two people that sort of take care of him, but I think one of them was on vacation a few weeks ago, and I could see it dropping, dropping. And so I called a call and I couldn't get through, and I called again. And finally someone picked up and they said, Oh, yes, well, he's sleeping. I'm like, you need to wake him up. Like, this is not good. We don't want him to get out and say, but I'm like, I would like my child to wake up. I don't want him to continue sleeping for the rest of his life.
Scott Benner 21:17
This might be the wrong kind of sleeping.
Karina 21:19
Yeah. Like, wake him up, and I want to be there, I want to hear him, I want you to tell me that he's alert and give him so they so I gave them you know, again, they don't they don't do this 24 seven, they do this for a good chunk of time. But they still, you know, it takes a long time to understand it. And I'm leaving my son with them. So the CGM has helped us that way. Because I can literally call and go What's going on? And, you know, get them to back it up with a fingerprint if need be, or Yeah, just talk them through it.
Scott Benner 21:46
It's so it is just very interesting. listening to you this early on in the whole process. Like, seriously, I don't mean it. jokingly, I know you're a year into it, you're a height, listen, you're you're a focused person, you're a high energy person, you you you are somebody who believes they can get something accomplished. You seem like, at first glance, the really wrong person to have a kid to get diabetes, right. But at the same time, but at the same time. You You seem like you're managing it. And and I and I really feel like I could talk to you a year and a half from now or two years from now. And you just wouldn't be this person anymore. Because I think it's difficult for people to understand. You know, my daughter was two and she was diagnosed, she weighed about, you know, 17 pounds at that time. And it's a different animal to have a person with diabetes who can't really articulate how they feel, or their concerns or their fear or anything like that, you know, you do feel like you're you do feel like you're just in the dark constantly.
Karina 22:49
Yeah, right. And you are crying because they're too or they're crying because they're like, high or low or no, like, it's imminent death all day long. Like, you're just like, What is going on? Oh,
Scott Benner 23:01
yeah, no, by the way, I just have to say I've heard a noise in the background just now on your end. And because you're Canadian, I thought it was a wolf.
Karina 23:10
Wolf, like my one of our creative directors, has her two twins in them running down the halls and screaming,
Scott Benner 23:18
it's completely unfair of me, because if you were calling me from any place, the United States, I would have just assumed it was something else. But you're in Canada. So I imagine there's like a moose outside of your window.
Karina 23:29
Maybe Maybe we're downtown Toronto with skyscrapers, but like a mini Manhattan, I guess.
Scott Benner 23:37
I think is when I'm
Karina 23:38
sure that we do have major parklands. So I'm sure there isn't. There's a coyote or at least a coyote. Pretty close. I mean, they do. They do have new news clips. A couple summers ago where people were throwing balls from coyotes. I may be making that up. But I pretty sure I heard that you
Unknown Speaker 23:57
might be making coyotes.
Karina 24:00
They were playing I think they were playing with the coyotes or something but like it was a dog, but don't quote me on that cuz everyone's gonna think that we're really not up here. Sure.
Scott Benner 24:11
Okay, so what's been the biggest leap for you so far? You want to talk about elite? How about understanding what your blood sugar's doing? how fast it's doing it when it does it? What's impacting it? That's elite. And that's exactly what you get with the dexcom g five continuous glucose monitor. You see how slick I am there. I was like, this was what I said back when I recorded the podcast, and now it's an ad. All right, people listen. dexcom.com forward slash juice box. You want to be able to see your blood sugar. You want to see how fast it's moving. You want to see when I put juice in here. This is how long it takes to settle back out again. Do you want to get off the roller coaster? You have to understand the data that comes back from the Dexcom you hear us talking about it every week on the podcast. It could not be any clearer. This is the way we roll. My daughter say when See has been between 5.6 and 6.2 for now over four years. And I'm telling you that without the Omni pod insulin pump and the data that comes back from the dexcom, continuous glucose monitor these things, these successes do not exist in our life. How about sharing? Follow? How about that idea? How about being able to see someone's blood sugar when you're not with them. So it's not just these little successes you can have between five when you get home from work and you know, before you go to bed or something like that, but you can see somebody's blood sugar on your phone, when they're sleeping. When they're at school, when they're off at College, where they're in gym class, when they're playing softball when they're playing soccer. You can see it always, this is definitely something you should be interested in. Please trust me, please either click on the link in the show notes or go to dexcom.com Ford slash juice box to find out more. The Dexcom g five continuous glucose monitor is a game changer.
What's been the biggest leap for you so far? I know you've seen the blood sugar is a big deal. And you get that but and you know, we talked about taking care of higher blood sugar's but how do you make all that happen? Is it it to me your fear seems palpable like that that's something I've heard over the last half an hour, you've mentioned a couple of different times being scared in the hospital, you know, at diagnosis, like you know, Bobby, when he's in daycare, so fears like an overwhelming factor in your life still. And I'm, I'd be really interested. You know, if we were if we were friends and we were chatting about this, I'd be really interested in trying to get that that part of this process gone for you, because it's such a big leap after you stop being afraid.
Karina 26:50
I think the hard part is that your medical, like we just had our three month appointment a couple a few weeks ago, and got it a Wednesday and it was seven and a half, which I was like, Oh, really? I was like, No. Why? Why? Why is it seven and a half? We need to get the lower?
Unknown Speaker 27:06
Was it What was it prior?
Karina 27:07
I seven and a half? So it didn't change?
Scott Benner 27:09
Okay, but but seven is very first of all very good, especially for a little kid.
Unknown Speaker 27:13
Yeah. You know, everybody says,
Scott Benner 27:14
You can't listen, that they're just trying to be nice to you know, telling you for real. And so, you know, it's it's, it's hard to pinpoint exactly what they're going to eat or not eat makes it more difficult to Pre-Bolus you know, they're, you know, they're, they take naps. You know, like in the middle of the day they you know, you know, my daughter doesn't just decide to lay down it's a matter of fact, you know, when when when people go to sleep I see with Arden all the time, when she finally goes to sleep, her blood sugar begins to fall almost all the time. I'm already thinking about getting Jennifer Smith back on to talk about why your blood sugar gets low when you are that
Karina 27:53
that would be great. Even let's say like, I'm like, Is this normal that we're giving him like, I forgot somehow to get bananas and yesterday at the store, but I was like, well, we have honey and I love that we use I think you said it once to like it's the funniest thing to see a child debt asleep, eating and like searching for that food with their mouth. Like it's hilarious, but I forgot bananas. And so I gave him honey and it stabili like I just did the nudging with the sugar surfing, nudging. And so that worked. But then like, a few hours later, the alarms are going off. And we did a little bit more. And so I didn't I don't know if I maybe I haven't listened to that episode yet. But I'll go back and listen to but I didn't realize because I said it. Well, Bo was saying, I don't understand what's happening. Like maybe we need to drop his 11 year and I'm like, no, we're not like I'd rather give him a little bit extra to help him and be up five times a night then having behind. It's just that's where I am now like, whereas before, I'd be like, I don't want to see a single digit because it freaked me out. But that was before the CGM now, like double digit are like, the worst for me. And I mean double digits,
Scott Benner 28:59
like a high number.
Karina 29:00
Exactly. So I'd be like 10 times each. That's 180 I can't do that math in my head. So if I sound like a 180 I'd be like, freaking out. But
Scott Benner 29:11
so so let's talk about that. I think that, you know, I just this morning before I spoke to you listen to one of the podcasts that I like invisibie Leah, and they were talking about they were talking about emotions and how the the, the standard concept that we have of emotions are that they happen to you. But there's this researcher who's making these kind of great, you know, inroads with the concept that some of your emotions are, are not just happening to you, but you can be in control of them a little bit. And so I would think, just from listening to you for a little bit, keeping in mind I have literally no training whatsoever in psychology, that I think you're creating your fear. Oh, yeah, then so because you You seem like cognitively you're not scared. But then your reaction pushes you to a place where you feel like you should be, which is afraid for his life. And and I think if you I think it's possible, you might be your own trigger. Yeah,
Karina 30:13
I need to figure out, I think you hit the nail on the head, in some respects there, I think that my response to fear is to read as much as I can like, that's why I'm going to night school for to become a holistic nutritionist, like I work in advertising full time I have a child with Type One Diabetes, I don't need to be going to night school two nights a week really, to figure this out for you for yourself, before the complications arise, I want to know that I can help support his liver, if he has liver compensation, I want to know that I can help support his kidneys in a holistic way, versus just more dialysis and drugs and everything else I want to be able to be prepared to read about that I haven't physically been able to read about. And listen, I think there's a couple of I think you had a couple people on that talked about the death of their children. And I did listen to one of them, I believe, and
Unknown Speaker 31:05
it was
Karina 31:08
it, you know, I wanted them to tell me exactly what not to do. But obviously, that wasn't the purpose of the podcast. But you know, it's so you know,
Scott Benner 31:20
yeah, and so I do think you're in a you're in a spot that I completely understand, by the way, that you're just just thinking about, but at the same time, I understand feeling that way. But I would want to encourage you not to, you know, because I think the idea that knowing for sure something's going to go wrong in the future is only going to sort of Ruin now. For Yeah, you know, and and so the lesson you might want to take from, from the moms who have shared about their their children passing away, as you know, one in one in their early life and around 12 or 13. No one is a teenager just about ready to graduate school. I think one of the lessons there is they both said the same thing, they wouldn't have traded, like the life their kids got to live for the promise of more, because what if they? What if they just lived this sort of covered up scared life and then got 40 years of fear instead of 24 years of happiness? And I think you're in a really kind of strange again, understandable, but, but but spot that you in my opinion should get out of if you can be you know, because because if something does happen 40 years from now, to your son's liver. You know, there's probably gonna be there's gonna be advanced by then that you can't imagine right now. Yeah, yeah. So I think that my my, my thought here is, try to imagine that 40 years ago, somebody was trying really hard to come up with a weight or, I don't know, regulate insulin better, except now that just sort of exists in that person. Didn't, they weren't the one who did it. You know what I mean? Like, I think that even though you're living in the best possible time to have Type One Diabetes right now, that five years from now is going to be that much better. And 10 years from now is going to be that much better. And it's hard to on sorry, hold on a second, I just have to tell her something. She needs a couple of little snacks. And for some reason is is incapable of reading up to tax. Just Just what I'm like, well just look up a little bit. It's right there. You know, but but but but nevertheless. So. You know, there's going to be you know, I know that people get promised all the time. You know, there's there's that old adage, I was told there'd be a cure in five years like this thing, right? So it's hard to say stuff like this, but I am. I have no backroom information. I only know what's out in the public. But I would bet my house that we're all going to be using insulin pumps that talk to glucose monitors and have an algorithm that decides on when to cut your insulin back and when to give you more insulin by 2018 2019. And that is so close to now it's it's you know,
Karina 34:23
yeah and i mean i look at macros still only be like under five
Scott Benner 34:29
right? And so so you trying to figure out a microbiotic that might support his liver better 35 years from now, may not be a good use of your time is what I'm saying. But, but I don't want to I'm not mocking you because I 1,000,000% understand how you feel. And when you're and just like in the beginning when we were talking about not getting enough actionable direction from doctors in the in the vacuum. You do it ever you do because you're trying you're trying to get somewhere trying to get the Something tried to fix it trying to get past it.
Karina 35:02
And I just when he was first diagnosed, I literally did. And I was probably a little bit not judgey. But like, oh, how come people don't know this, like I researched anyone who found a cure for type one. And and I contacted about five or six scientists. There's a couple of Harvard and Princeton like there's one in Toronto that I messaged you about initially? Who's doing that clip human clinical trial right now. And so I did all this research, and then I think the, and I was, I was all right, always leaning towards trying to give my son a more healthy diet and try not to, you know, try to limit his sugars in general before diagnosis and had that mentality. Obviously, you you know, if he didn't have type one, it'd be a different, you know, you get you're on the road, and you're like, oh, here sure have McDonald's I hear sure have this. You know, it's guys contract is here shirts Halloween? Sure. You know, but because he has type one, you're not as it's not as a kind of go to as much as, as it would have been? Probably. But so I did all this research. And the dietician of the hospital handed me the sheet with food on it. And again, it was geared towards someone who was older, because there's like Caesar salad on it, and all this weird stuff. And I was like, what, like, I wouldn't feed my kid this food, like, what is this? There's, so it didn't give me the tools. And then they were saying you need to feed him 90 grams of carbs a day. And I'm like, do you know how many you know how much that is in a serving. So he's 10 months old, like, he can't eat like a half a cup of rice. And like, that would be all he could eat better. With the other things, we're trying to get into him like healthy proteins and vegetables, and make some fruits like, you know, he's going to be 500 pounds. So I was like, he can't eat that much. And luckily, like you talked with picky eaters, he was he's a very, very good eater, almost to his detriment, because he always wants more. But I was just like this, there's got to be another way. And I just wasn't getting it through the dietician and book it and saying, you got to stop fighting with a dietitian about this. And I said, Well, I just I'm not relenting like she handed me the Canada Food Guide, which is a debunked, you know, it's a joke here. And I was like, I'm sorry, I'm not Feeding My Kid this way. Like, that's, that's not a valid way of eating anymore. And so I said to him, we have to go. So I tried to find a naturopath or someone that specialized in diabetes in pediatrics, couldn't find anyone in the northeast. So we flew down about a month or so after his diagnosis to Arizona, and met with a doctor there just to just to feel like I wasn't going to harm my child, because the the dietitian was basically like, you're going to starve your child, you're going to you're going to affect his development. And, you know, going back to the research, I found a study about children with epilepsy that were on a low carb diet. And they didn't have they didn't have a study on it on any developmental impact. But I brought that forward to my, to my endocrinologist. And to his credit, he said, You know, I did some research on that. And I'm going to contact the scientists who did the study to see if they had any developmental issues as part of it. So I really pushed my team to think outside the box and have a different dialogue, because I just wouldn't put up with it. I was just like, I'm not having this discussion with you. Like, I'm not giving my son 90 carbs. I feel like, you know, for three tablespoons of rice is an appropriate amount to give him. And plus it's not working like we weren't, we did what they said. And it was, he was still out of control. So it was just like, a pair. But
Scott Benner 38:41
no, it's funny doing you, when you what I just heard you say is just something you hear all the time you there's a nutritionist in front of your somebody in front of you, they said like basically, look, I have this laminated card here. And what it says is 90 carbs. So I was told that this is for nutrition. So obviously, if you don't eat the 90 carbs, your child's going to suffer from malnutrition. And so what you're what you're faced with, is maybe not bad information, but information that's not completely thought through properly by the people who are passing it on to you. And that's, that's tough, because what I what they should have said was, hey, listen, if you know, a little bit less rice is working for him, then we'll keep track of his growth. And we'll see like, you know, because they can do that curve, and follow and follow that curve. And as long as they see growth and you're doing well. Yeah, you know what I mean? Plus I really dislike the the the concept that comes from and I just mentioned this the other day, and I'm gonna say it again like this, and I'm because these episodes are getting out of order. I'm confused at this point. But, um, but I don't like the idea that, you know, when when somebody says you do this, and if you don't do that you failed, you know, or they decide they can't figure out how to motivate you properly. So then they try to shame you into doing it.
Karina 40:00
town, that's awesome to hear. That's my favorite. I'm like, Are you telling me I'd like just so in Canada, we have 12 months for maternity leave. And so he was diagnosed at 10 months, I'm supposed to going back to work in the in two months. And we lined up our daycare daycare was like, you know, I don't know, if we can take him anymore, we're not prepared to have this child in our care. So all this stuff is coming crashing down. And I had a finite amount of time to get everything organized to the point where I, you know, I could leave my child who I don't even know how to care for you, with someone else. And, and then, and then on top of it, they're like, oh, like, I heard starvation ketones, and I'm gonna harm my child's development and cognitive issues and all this stuff. And I'm like, Whoa, my head is spinning. I don't understand how you can look at my son's diet. And he's, he was at the time, like, again, before, like, I was feeding him this way. You know, I had to plan to feed him this way anyway, but he was having beet greens and everything was like, here's some, some spinach and everything was homemade and holistic and, and so he was already doing that. I'm like, you're I said, How can you look at my son's diet? Who has five to 10 different food items, every single meal? And you're telling me that this isn't healthy? What child Do you know? Be greens or almond pancakes? Or, you know,
Scott Benner 41:17
here's my question to you, right? When you're when you're providing that much nutrition for your child. And the nutritious is the nutritionist is telling you that the difference here is rice. You know, you need without more rice, you need more at what? I want to ask you I want to be delicate, cuz I'm not I don't want to shame you. But why didn't you just go? Why didn't you just nod your head and go, Okay, okay. Okay. Okay, I'm gonna walk out and just do what you're doing.
Karina 41:43
Yeah, Bo does that he's like, why are you arguing with her? Just nod and say, Sure. And I'm like, because I want her to understand she's, she's not giving the right information. I was like, was almost like my duty to educate her to say, you know, have you ever scooped out 90 grams of carbs on a plate and divided it among three meals? Have you ever done it?
Scott Benner 42:01
Like what I would say what I would say in that situation is I will tell you that I feel like this is not good advice. I'm not going to be taking it. And I really wish you would reconsider giving it to other people.
Karina 42:13
Yeah, yeah. And I think at the time, like that was when we were first. So the first so that we get we get released after into diabetes day care at the hospital, again, really great program, really, you know, overall, really great tools. But there's some elements that obviously weren't effective for me. But we get released in there and they order but I finally get the crib in the room and they order they order his lunch, and I just been in the hospital ordering in the hospital, you basically get a menu and you could order whatever you want for your three meals. So I was ordering him salmon and steamed vegetables. So I know that they have it at the hospital will be the same kitchen that they order from. So his first meal that he gets delivered to for him out of out of DK and out of the hospital is the dietician had ordered macaroni and cheese, a white roll and milk. And at the time, I was like I know funny. I know. I'm like, Oh, he's gonna love this. You've never had mac and cheese because I hadn't. I still so exhausted I hadn't. I didn't do any of the research. I haven't done the research yet to understand the impact of curbs, on his blood sugar. So this is what they give him. I was like, so afterwards, I was like, Oh my gosh, this is a person who's giving me dietary advice. They ordered him mac and cheese. And like, what the hell and he's 10 months old, but he doesn't eat a bowl. Like, but there's no there's not even a vegetable in the plane. It's really
Scott Benner 43:37
super interesting, to be perfectly honest. And, you know, I mean, there's there there are three things that you know, I wouldn't mix with each other if I if I didn't have to, you know, not that Arden doesn't eat white bread. She does not she hasn't had macaroni and cheese. I think she had it this week, we'd like chicken. But you know, and milk. She gets mostly milk from from cereal and things like that. But, but but the point is, is that if you put all three of them together, I'm fairly adapted bolusing and I would look at that and go Whoa, boy. Like, yeah, let me figure out how to do that. Because that to me seems like it requires a lot of insulin. And and I don't have your 10 month old doesn't have a glucose monitor at that point. It's a it's a leap to tell me Hey, let's really carb up here and but I think what you're what you're seeing is, is that they weren't going to be that aggressive with the insulin. So the goal was maybe to tap maybe maybe the goal was to teach you Hey, look, don't restrict anything. It'll be okay and and the blood sugar is going to get high and it'll come down later and there that is how people that some people think about it that way.
Karina 44:47
Like I said, like we until I listened to your people this influence podcast, the concept of treating the high wasn't there and I like so at my three month appointment as I mentioned, I sent them like and I know And I think I said before you're like, I just don't tell. All right, we just don't. Most of us don't tell her and acknowledge what we're doing. We just got to say, yeah, this is great. Yeah. Thanks for the advice and move on and just continue on with, you know, our Pre-Bolus thing
Scott Benner 45:12
would be my no play when I tell him to do that. I'll do this. How did you get this like that? Oh, I did that. We don't recommend that.
Karina 45:20
Don't Yeah, that's interesting. That was mine. I just my nurse, and she's like, well, Kareena, that's stalking. I'm like, Yeah, I said, You know what? I said, I will not tolerate a high anymore. I'm done with it. And she looked at me like what? And I said, I'm sorry. So I said, I'm not I'm not doing it anymore. Like we can't get his agency down to where you want it into that safe range without doing this. Like, it's I think it's virtually impossible. You cannot pull it. It's very
Scott Benner 45:45
afraid of it. If your blood sugar is at this for this amount of time you're a one sees going to be this. So having a person tell you look, macaroni and cheese, don't worry about Pre-Bolus. And I wouldn't even bother if I was you.
Unknown Speaker 45:56
Baba. I didn't even tell us about that. I had no idea.
Scott Benner 46:01
Don't worry about it. Yeah. Why is your agency not lower?
Karina 46:04
Yeah. And I'm like, so you're a bad doctor? Is the thing is like, there's so there's so smart. I just, that's my mic. I'm like, do you need more parents in the program to help? You know, with your program development, I don't know. Like, it just is so shocking to me that we're expected to control everything with carbs. And carbs. To me, like, for a long time was a big bad four letter word. And so again, listening to your podcast, and how free you are with, you know, allowing art and to have, you know, quote, unquote, a normal life and normal food choices and things like that, like I you know, it helps me ease back a little bit. I'm not fully there yet. But I do believe like, as soon as I know, I really do believe in it. I don't
Scott Benner 46:51
know, I think I think it's coming for you too. I just think that, listen, I think you're sabotaging yourself a little bit. But I think you're getting to it. And I can't I can't fault you. I want to give you I want to tell you two simple, like kind of like colloquial ideas. So first of all, my son plays baseball constantly. And there's this thing that happens in coaching, where if you're good, coaches want to be able to at some point, say they had something to do with it. So even if you're having success, you'll you'll see somebody come up and say, Hey, you should try this, because they want to put their stamp on you so that when you succeed, they can even if it's just in their own heart, they can say hi at a part of that. Yeah, you know what I mean? And so here's something I taught my son a really long time ago, and it is definitely the smile and nod. You just go absolutely. I understand. Yes. Okay, I'm on it. I got it. Thank you, and then walk away and do what works for you?
Karina 47:46
Well, I have a master that she needs to She needs a smile and not the talking, she needs to smile and nod and back out of the room.
Scott Benner 47:53
Oh, by the way, because keep this in mind. Let's take it a step further. Your nutritionist has a job. Yeah, being a nutritionist at a hospital. If what they understand about nutrition, or what they're saying is not valuable, then what are they doing there. And at some point, I'm protecting my job, I was told to tell you this, I get paid to tell you this, I'm telling it to you.
Karina 48:17
The dietitians of the hospital or government directed though they do have to follow the Canada Food Guide. So until that changes, I don't know that their nutrition space is going to change. And they do say it doesn't matter. Like literally and I'm sure you've heard this as well. And it doesn't matter what you feed him we'll just match insulin. Oh, by the way,
Scott Benner 48:35
I don't have a problem with that. But the time the insulin, you can't just the amount of it doesn't count. You don't I mean, I'll give Arden almost anything. Yeah, but it's not just the amount. It's not like, Wow, that's a lot of carbs, that's gonna be a lot of insulin. It's, Wow, that's a lot of carbs, that's gonna be a lot of insulin, I really have to time this correctly. So that when these carbs are trying to make their effect on her blood sugar, that insulin is fighting back and equal and, and and specifically timed way. You
Karina 49:05
know, it's so brilliant. Like I said,
Scott Benner 49:10
it's literally not brilliant, it's tug of war. If you pull on one side, and I don't pull on the other side, you fall over, and vice versa. And when we're both pulling equally, that rag just sits in the middle of that rope and never moves you can pull forever and it's not going to matter. You just need the insulin and the carbs to be pulling at the same time. And you need them to get done. At the same time or in reasonably speaking. Same sight. Yes, it's very basic idea. I learned it by watching the Dexcom graph. You know, I just I was like, okay, the insulin went in here. And she got low. But then, you know, 25 minutes later started getting high. So that means that the food didn't start really hitting her until 25 minutes. What was that meal? Oh, you know what, it was a real heavy meal. There was no simple sugars, nothing that would affect her very quickly. It's stuff that took a little long time to it. And then She had like a like a high later Why? Well, because they It was a, I don't know there was a bagel on their pretzel. It's still sitting in her stomach and dissolving slowly and giving off sugar. And so now my insulin is gone, but the bagel still being digested. Like like then I was like, wow, okay, so maybe I should do an extendable stretch that insulin out a little more because I don't need a big burst of insulin up front. There's no simple sugar. So let it go in slower, or if it's a mix of stuff, that's more simple sugars that your body's going to pick up quicker. And you know, and it's a long lasting then maybe what I need is more insulin and habit extended. And it just started working I I gave her Ardennes. Yesterday her lunch Pre-Bolus is going to be very similar to what it was. It's going to be today because right now today, her blood sugar is 66. So it was 71 while we were talking it was 70 right before you and I started talking. We cut her bazel off for a half an hour. But we were still have some insulin leftover from a high blood sugar from early in the morning. So too. Early in the morning before she woke up. Arden's blood sugar got high. And I didn't wake up for the CGM. So I had to address a 200 a big budget or a 250 for us, which is really big. So I gave her a bunch of insulin. But I didn't give her enough to like, crash it I needed to come down slowly because she was on our way to school. So she's been drifting down over these, the first couple hours of school, she got the 130 to 120 to one to one and then 90 and 80. And she got the 75. And I said, Hey, shut your bezel off for half an hour. And I did it too late. So she hit 60. sick, or she hits 70. And right there. And I sent her a text while you and I were talking and she's got like some fruit snacks. I told her to eat half the pack of them.
Unknown Speaker 51:51
3.9 Yeah,
Scott Benner 51:53
right. And so so
Unknown Speaker 51:55
arranged by
Scott Benner 51:56
7070, we try for 70 to 130. So and by the way, too, she hasn't tested she's at school, it's possible she could test and she's really at five, because she ate snacks right now and the CGM is going to be behind by a couple of minutes. And what I'm watching is, is the very gentle bend at the end of the three hour line and it's bending back up again. Yeah, so there's part of me that thinks in one more minute when this thing cycles again, I'm going to be able to tell you her blood sugar's a little higher than this, which is an indication they're either just still going off. And I don't want it to go flying up, because 20 minutes from now I need to give her insulin for lunch. And so the concept here will be is if she's still in the 70s 20 minutes from now, I still have to give her I'm pretty sure that her her lunch today is going to need nine units of insulin. And so my, my concept here is, is that I'm going to give her nine units events in 20 minutes from now and her blood sugar 70 or 75. I'm going to extend it out, I'm going to give her zero percent of it upfront, none of it. And I'll extend the rest out over a half an hour. so that by the time she sits down and eats the first four ish units have been put in, but they're not even working yet. Yeah, so she starts eating with a 75 blood sugar. And just as the food starts the header, the insulin starch store. And that's it. It literally it's very simple, right? It's very, very simple.
Karina 53:21
We don't have a pumpkin. So like that is blowing my mind. Like, oh my god, I'm not ready.
Scott Benner 53:26
But it's very simple. Because Because it because I've done it a billion times you might have listened to it and been like, yeah, those words are simple. But how do I make that happen. And the way you make that happen is experienced by seeing it happen over and over again till you trust this is what happens in this situation. Once you can trust it, then you can work with it. And by the way, it'll go wrong once in a while, once a year, it'll go wrong. And when it goes wrong, we get alerted. And then we do something else. You know if if me being all like bold right now with her blood sugar sitting at 70 get sideways on me in the next 10 minutes, and she's all the sudden diagonal down in the 60s. So then I'll have her drink some juice,
Karina 54:08
while we're so much more in control with the lows now like, again, because I listened to you and like we can treat them It's trying, it's cutting that nudging concept, which I love. It's just trying to get that arrow to go horizontal. And then we can take a couple breaths and see where we're going and you know, figure out the plan.
Scott Benner 54:27
And a lot of it's by the way, was great thanks to if you go all the way back to an episode called Rick lives on a boat. Because I was talking directly he lives on a boat. And I'm not that imagined, make up the title of the podcast episode. But he said you know he's a guy I've read I found out that people who don't have type one diabetes, their blood sugar goes down into the mid 60s and stays there sometimes for an hour. And
Karina 54:51
I said what are we comparing this to like? What is a normal person without type one What are their blood sugars do and they don't give you that information. So I like I really font of context. And I, like I like, you know, even with my agency I was like, but because they were one of the first day onesies, we had, I think it was, I think, I don't think we've ever gotten more than eight and a half. But I said, you know, but they have, but that's artificial, because he's had so many loads, it's going to bring his highs down. So why are we even talking about this? I'm an endocrinologist. Like, yeah, you're right. I don't like but the ANC is an indication of his overall health. And it's artificial. So what are we doing here?
Scott Benner 55:27
Well, I have to I have to complain to anybody that heard you just say that I really want to tell you go back around Episode 100. somewhere and listen to all about a one C with Jenny Smith CDE. It is a really great episode where we all mean a certified diabetes educator that I love and trust, beyond trust, we just talked about it for an hour and a half. It just it you're 100% right context, it's important. It's very important. So you know, you know, it just, you need those tools. Right, I was going back to what I was saying, like, what, what makes that easy for me, it's that I know how the insulin works on my daughter, and that I know what the food's gonna do there. And then I just balance those two things. And I put them together, I've tried to explain it a million different ways over the podcasts. But in the end, you're just lining those two things up so that they work at the same time. Sometimes I think about it as like the scales of justice makes them both scale sides have a hole in the middle. And I'm trying to fill them with sand and keep them balanced at the same time. Yeah, and so you put sand in and then you have to put some in the other side, then it runs out, you just sort of keep putting it in you just if you put it in the right spots. The scale never moves, you know. And so you just have to add carbs, or add insulin or subtract carbs or subtract insulin at the appropriate times.
Karina 56:45
Yeah, I feel so much like today, compared to last year. Like, it just didn't have control. And he'd be high and we didn't have any tools to do anything. And I'd listen and read I'm like, but we weren't told to give him extra injections. You know, he's like, maybe it's because he's on a pump. But I realized now it's because they were you know, obviously afraid with his age him going so low. But now that we have the CGM I'm so much more able to you know, take those leaps and understand that I have it is in my control to correct it. I can, you know,
Scott Benner 57:14
there is genuinely no nothing wrong with being very cognizant of that aware of it and and respectful of it. But you can't be afraid of it
Karina 57:25
now and I even changed his his his mornings before were much broader. And I literally like no, I'm so confident. Now I'm going to tighten that up. I'm not I'm not I never keep up. The lines never seem to stay in there for very long, but they're they're like they're tightened. I just have to get to the point where I can get that more balanced line. But I want
Scott Benner 57:45
to say Good for you, by the way, because far too often. I hear people say, Oh, I have a glucose monitor. But you know, I have the high threshold set at 300. Because I don't want that thing bothering me. And I'm like, wait, what's it for then? Yeah, it is. So it you need a little Hey, your blood sugar's getting out of range. Handle it now before later, it's so much simpler to stop, you know, a diagonal up 130 arrow and get it back to 110 than it is to be told an hour from now. Hey, wow, look, your blood sugar has been climbing for an hour and a half and you're 250 now
Karina 58:16
what am I gonna do get more sleep like I don't get any up and being productive, that
Scott Benner 58:21
you're gonna get more sleep one day, don't worry. Just don't listen, here's the goal. Don't die before that moment. And if you were don't go crazy and get out your car like Tiger Woods, start driving around or something like that. Because if you if you can, if you can hold yourself together until that's about you will get more sleep.
Karina 58:37
So I just read this morning sidebar, that Tiger wasn't actually driving, he was asleep in the passenger side and he still got to rest it sounds like that's a really bad luck
Unknown Speaker 58:47
to get out of that, by the way.
Karina 58:50
So I have two questions for you. Because we have a coach, we often have minimal ketones. And our dietitians always freaking out and like not giving enough because they know my mentality. They're like you're just not giving him enough carbs. I'm like, but we are he's getting, you know, rice or or sweet potato or you know, some sort of car like that with every year,
Scott Benner 59:14
your dietitian thinks that your son has ketones because of like starvation ketones, like he hasn't eat enough food and he's in ketosis.
Karina 59:22
But because of my previous you know, arguments with them, I think they just immediately go there
Scott Benner 59:28
when I'm asking you does he eat on a regular schedule? Oh, yeah, other sock carbs and what he's eating? Yeah. I mean, are his blood sugar's a little elevated?
Unknown Speaker 59:39
Sometimes Yeah,
Scott Benner 59:40
I think that's probably that.
Karina 59:42
Well, then why don't they like so they accuse me cuz I'm like, does everyone have no ketones? Really? Like no one has everyone has zero? Well, I
Scott Benner 59:49
think I think you know, I think ketones don't. Listen, they're dangerous, obviously. And they're a sign that you know, they can be a sign of dks coming which is I think why the doctor is so crazy. about, you know, talking to you about them, I maybe go to a different source to get the answer not for me, obviously, because, you know, the extent of my day, so far as I've cleaned apart in a panel, I'm planning on coming along later. So, but but you know, go to somebody who really knows, because if he's getting enough nutrition, and it's not that then really what your concern should be is, you know, do you have enough insulin? You know, maybe maybe you're not using enough slow acting insulin because you're not on a pump. Right. And so if you find yourself, you know, injecting a lot to affect things. That could be because you don't have enough background insulin. Mm hmm. And if you don't have enough background insulin for all day long, then you aren't going to see ketones, I imagine.
Karina 1:00:46
And I think it's really hard with him because he's so we have increased his level Mayer in certain instances, and at one point, his daytime living where we'd like to unit is nighttime loving, living room with a half a unit, you should
Scott Benner 1:01:00
give it to him every 12 hours.
Karina 1:01:02
Exactly. Now, now, his nighttime one is up to two, and his daytime is still running a bit higher at two and a half. But it's just been like, you know, everyone talks about growth spurts, and whatever else and you know, so I think it's just gonna be trial and error, and I need to be comfortable. And I'm trying to be comfortable in that, you know, uneasiness. Oh, no, it's
Scott Benner 1:01:24
not, it's definitely not easy. And you're not the first person I've spoken to, by the way from Canada, who has issues because of the way the healthcare set up and what they're allowed. They're very stringent about what they're allowed to say what they're not allowed to say. And it's different down here. It's not, oh, the government told me to say this. So I said that down here. It's, hey, we have we're protecting ourselves from litigation. That's not what we recommend. Yeah. And, you know, when when a doctor tells you, that's not what we recommend, many times what they mean is, I have a better idea of what to do. But our lawyers have told us not to say that. So that's not what we recommend. And you're in a very similar just Canadian version of that, you know, this, this is what the laminated card says. So
Karina 1:02:09
yeah, yeah. And I mean, this is what is covered, this is what's not covered, and you just sort of make those decisions, I guess, based on what's available to you.
Scott Benner 1:02:18
So are you thinking we are Wait, we're up on an hour? Are you thinking about a pump?
Karina 1:02:22
Yeah, and again, our only hesitation, you know, as I mentioned in the in the top app is he's got so little real estate on his little body. So that's been a mental issue for us to get over. And also we sort of wanted it to be his decision. But I think you know, the fact that there's the Omni pod, and there's not all those other contraptions that's much more appealing to me. So I think you know, we've gone to the car cast in Toronto, I don't know if it's Canada wide, but in Toronto, you have, in order to get a pump, you have to go to carb counting classes, which are not very helpful, and also pump to pump classes. So we've gone to the carb counting classes, and then we just have to go to the pump classes in order to be qualified to get the pump. So
Scott Benner 1:03:07
let me give you some advice, which I don't often do both of the things that you're concerned about, you won't be concerned about after you died. So the real estate on his body and you know, like he said, if you're going to go with a with a tubeless pump, then you're not going to know things are going to be hanging off he's not gonna have to wear like a belt with his pump in it or something like that. You'll be much happier afterwards. I you can go back and listen to any number of these episodes when people answer those questions. And I don't know what I waited so long for I can't believe I was scared. You know, I felt ridiculous later because I made such a big deal out of it. You know, Baba, everyone says the same thing. And by the way, some people don't say the same thing. Those people don't those people don't have pumps. But I think that I think that the the odds are with you that you're just gonna you're gonna be fine. I would try to you know, because I'm looking out for your, your, your spirit, not your husband obviously but your significant other, but I'm looking out for him by telling you I think that this is just another area where maybe you're maybe you're your own trigger. Just
Karina 1:04:07
fine. I will say is more him than me.
Unknown Speaker 1:04:13
Not to be confused. He
Scott Benner 1:04:16
looks at you like you're crazy. Of course he's not perfect. It's just it's another one of those. It's you know, now that becomes a This isn't how I imagined my kid.
Unknown Speaker 1:04:29
Yeah. And so
Scott Benner 1:04:31
tell them to trust. Try to imagine them like that. And then everything will be fine.
Karina 1:04:35
Yeah, we moved CGM. So CGM, like the nurse told us it needs to go on a stomach because of his age. And for the longest time was like since we've had it. I mean, it doesn't seem like that long. But it's, you know, a day a week goes by with type one diabetes, and it feels like months. So we've only had our CGM for Korea since February but we finally just I saw someone else on Instagram had had this child similar age to Mac and she had His CGM on on his arm and I had to start and said, Hey, I said, you know what's with the arm? Like, you're good to do that. But you know, after all these questions like, Oh, yeah, we've never done the stomach. And so then right then I said, we're changing. It
Scott Benner 1:05:13
has never been on our stomach. Yeah. By the way, Oh, where's ours on her hips? Oh, man. So there's sort of that I've described it before. But real quickly, there's a, you know, kind of a space between the point of your hip and the rail, the roundness of your buck curve that's a little flat. And she just puts them there with the, with the wire headed towards the cheek
Karina 1:05:39
might not fly anymore. So I'm trying to feel
Scott Benner 1:05:42
like I get where it used to be. But you know, there's that spot there. So between the and and Arden's insanely active and slides playing softball all the time, and we've never ever had an issue with that, as a matter of fact, I've only had one ripped off in, in recent or any memory and it was because her and my son were messing around and my son reached out and like quite literally grabbed her and grabbed the her shorts and the whole break at the same time. And she gasped at him and then we had to get off. So anyway, um, thank you so much for coming on. I genuinely at this point think that you could come back a year from now we could just call the next episode calm. Kareena. I, but I, you know, listen, I want to say again, I'm not a therapist, obviously. But But you, you know, you I think you are so close to making a leap for yourself. I think if you trust yourself a little more, and don't worry about the future that you can't control and stop trying to help people that, aren't you? Yeah, I think you're okay. After that. You know, I think you won't be arguing with your doctors, you won't be searching because you know, the search for a cure like I did. I didn't say it to you back then. But you were talking about how you contacted everybody who's looking for a cure, here's what I think about a cure. There's probably never going to be a cure for type one diabetes, but there could be. And I live every day, hopeful that there is but I don't live every day expecting that there will be. And then the last part of it is I never think about it. Because if someone cures type one diabetes, it'll be on the news, I'll find out. You know, you know, I mean, like, so searching for it. It's not like it exists, and you haven't found it. You know, and so I think if you can take sort of some of that, some of that, like searching out of your head, it would be really it was helpful for me, I'm not, I'm not judging you. I'm telling you for experience, I used to get up every morning, and scour the internet for ideas that diabetes was about to be cured, or that it had been cured. And just somehow magically, no one had told anybody, you know, and it's just obviously not the case.
Karina 1:07:54
So funny cuz I stopped. Like, it's funny that you say that, because I laughed myself not too long ago, I said, I remember when I used to wake up and do that exact thing or spend all night, just researching. And if, if there was a news article that came out a few months ago, with the cure, I would not know about that, because I just haven't done it. I haven't done any looking. It's, you know, I'm happy if someone reaches out and says, Hey, by the way, but you know, the same thing that you just too busy doing your own life, like you're living your own life. And
Scott Benner 1:08:24
there's also something to be said for the fact that there's something called research season where researchers need more money. So they find people to write articles about how great everything they're researching is, so they can get more money, which by the way, is needed. And I'm fine with all that. But it causes it can cause a newly diagnosed person or a person who's new to the any disease to get on reasonably hopeful all the time. I know they cure diabetes, the first time I found out they cured a mouse of type one diabetes. I was just like, oh, so this is just about over, you know, and then and then I realized that many money mice have been cured of a lot of type one diabetes, and it's in no way indicative that something's on the horizon. So yeah, my opinion. I, if you're, if you're thinking on the pod, I'd get one now. And you already have a CGM, and probably in the next, I'd say less than two years, those two devices will be talking to each other and a lot of what you're doing right now will just be gone. Yeah, so So stop trying to fix the future because you don't know what the future is going to be. I'm going to give you my favorite quote about this and I just gave it to a friend the other day in a private phone call worry is a waste of imagination. You are just imagining what you think is going to go wrong you have no way to know if it's true or not.
Karina 1:09:43
are both gonna love you make See I tell you this all the time. Don't worry about the future.
Scott Benner 1:09:47
Just look at him and go I know you think I'm crazy. Shut up. Well, listen, I you're really delightful and I'm I'm super glad we did this, but I have to you know A couple of seconds I'm gonna do Arden's pre balls, and like I said, I'm gonna cut the lawn and go grocery shopping. There's a lot for me to do today. Great. So I don't want anybody to be john. But I really appreciate you coming on.
Unknown Speaker 1:10:11
Thank you so much.
Scott Benner 1:10:12
Have a great day. How about Kareena coming on and being so amazingly open and honest, thank you so much for sharing your story. As always, if you're interested in being on the Juicebox Podcast, reach out to me and let me know I'm always looking for people to interview always looking for great stories, always looking for compelling ideas, and just honesty, something that people can listen to and understand, see themselves in so they can learn and grow and live better with type one. If you think you have that kind of story. Let me know. Thank you so much to Omni pod and dex comm for sponsoring the Juicebox Podcast, you can always go to my omnipod.com forward slash juice box with the links to your show notes. For dexcom.com forward slash juice box again, the links your show notes. And don't forget, there's another link in there today. If you're an omni pod user, you're loving the product and you'd like to leave a Google review. Super simple to do on the pod is looking for your feedback. Hey, if you're still listening, the show is pretty much over. But don't forget to subscribe to the podcast if you're just listening for the first time. Find me on social media and remember that I'll be back next week and every week with another episode.
Unknown Speaker 1:11:22
Thanks for listening
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