#1459 Money Where Your Mouth Is

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio -  Radio Public, Amazon Alexa or wherever they get audio.

Sandy, known from “The Fighter,” is 71 with 64 years of T1D experience. Recently, an existential moment sparked her return to share insights and inspire others.

+ Click for EPISODE TRANSCRIPT

---

DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Welcome back, friends to another episode of The Juicebox Podcast.

Sandy Schwartz 0:15
Hi. This is Sandy Schwartz. I'm looking forward to my second time on Juicebox, I've lived with diabetes for 64 years.

Scott Benner 0:27
Nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan. When you place your first order for ag one with my link, you'll get five free travel packs and a free year supply of vitamin D drink, ag one.com/juice box. Are you an adult living with type one or the caregiver of someone who is and a US resident? If you are, I'd love it if you would go to T 1d exchange.org/juice box and take the survey. When you complete that survey, your answers are used to move type one diabetes research of all kinds. So if you'd like to help with type one research, but don't have time to go to a doctor or an investigation and you want to do something right there from your sofa, this is the way t 1d exchange.org/juice, box. It should not take you more than about 10 minutes.

This episode of The Juicebox Podcast is sponsored by Medtronic diabetes and their mini med 780 G system designed to help ease the burden of diabetes management. Imagine fewer worries about mis Bolus is or miscalculated carbs, thanks to meal detection technology and automatic correction doses, learn more and get started today at Medtronic diabetes.com/juice box. This episode of the juice box podcast is sponsored by cozy Earth. Cozy earth.com use the offer code Juicebox at checkout to save 40% off of the clothing, towels, sheets, off of everything they have at cozy earth.com.

Sandy Schwartz 2:11
Hi, this is Sandy Schwartz. I'm looking forward to my second time on Juicebox.

Scott Benner 2:18
You were on. What Episode Do you know the name of it,

Sandy Schwartz 2:22
the fighter. And you told me I was old.

Scott Benner 2:26
That's what you remember from that.

Sandy Schwartz 2:30
It's like, the second thing you said, why don't you tell people how old you are? Because the way you talk, they might want to know. And I was like, that head, and I got mad and said that I had just gone and stood in the Keith Urban concert for five hours. How dare you? And that's how you got the name, the fighter, the fighter. And then to follow that up, when I listened to it, I was like, damn, I do sound

Scott Benner 2:57
old. Tell people now. How old are you? 71 I live

Speaker 1 3:01
with diabetes for 64 years. Okay, okay,

Scott Benner 3:05
wow, that's a long ass time. Why don't we just jump right back in and tell people why you wanted to come back on because you sent me, I'll say this. You sent me an email, and I wondered if you were okay when you said,

Sandy Schwartz 3:20
Yes, I did. I sent you an email and said that I wanted to come and talk about mortality. Okay? Because after Jimmy Buffet died, here we go with another obsession of mine, I started realizing that my life would end someday.

Scott Benner 3:40
That really is what got it to you. No kidding, Jimmy Buffet passing well for the back story, yeah,

Sandy Schwartz 3:47
you can take chronic illness and you can ignore it, or you, and I don't mean ignore it, but you can not accept any limitations, or you can feel like your life is over. And I was a rebel. So I took care of myself, but I didn't let it stop me from doing anything. And so I used to work on a scuba boat in the 70s as a scuba diving boat, and once I heard Jimmy Buffet for the first time at a concert, I was like, this guy sings about my life, and so I have been a parent. Had like 30 concerts, every every Broadway show, duck political rallies, book readings, Facebook groups. And he was like, larger than life for a lot of us. And so the fact that he could die was like, Oh, my God, I can die too. Does this song live like Jimmy Buffet does? And that's kind of how I lived. Well, let

Scott Benner 4:50
me ask you a question. Then, why are you not at? I can't believe I know about this. Why are you not at meeting of the minds right now, it's different. Now, it feels different that he's gone. Yeah, I guess I'm still grieving. Wow. Okay, I did go to a local a local place last week where a local artist that I follow was singing, and he sang a lot of buffet for me, I just feel differently now. Okay, also, here we go. But those people are younger than me. You feel a little older now all of a sudden, yeah, but I'm

Sandy Schwartz 5:31
accepting it. I mean, it's been over a year. You know, it takes we have to grieve for a year. So I got my year.

Scott Benner 5:39
So this is gonna sound strange for a second, but a friend of mine plays drums in a Jimmy Buffet. I guess are they tribute bands?

Unknown Speaker 5:48
Yeah? Tribute temp rock, tropical rock.

Scott Benner 5:51
Yeah, that's why I know about the meeting of the minds. I would not have known about it otherwise had I not seen a friend of mine like on a plane a couple of days ago. Do you know Jimmy and the parrots? No, no. Okay. I wasn't sure how many of these bands there are, because they're playing at the festival, so I wasn't certain. Well,

Sandy Schwartz 6:07
they're they're good if they're playing there. Okay, all right, awesome. Okay, so

Scott Benner 6:11
you spend your life listening to this music that resonates with you, right? And you feel connected to the singer passes. What do you know how old he was when he died, 76 Okay, he's older than you, but not that much older than you, five years and Sandy, this is the first time you, like in your life, that you've thought life is finite or it's just it hit you differently this time.

Sandy Schwartz 6:35
No, it's not the first time. I think there's some unsaid rules on here that I think are healthy about talking about death, but I have lost four good friends to complications of diabetes, and I think there's a caveat there. We were all diagnosed in the 60s and 70s. People who are diagnosed today, I think, can have a normal lifespan to the most part if they take care of themselves. So I'm not saying that to put fear in anyone Sure. Of course, I've faced more mortality. You know, if you go to the doctor and you get if the eye doctor tells me I have one little sign of background, retinopathy, I'm like, Oh, my God, I'm gonna die tomorrow. You know, I You can't help but that. But there was just something about this big, huge part of my life, and it's crazy because my dad died, and he lived with me for 20 years, and we were very close, but he wasn't my contemporary and my friends with diabetes who died. It wasn't shocking. I don't know. It's hard to say, Yeah, I can't come on here and just talk about death, that it's so morbid. And so I started thinking about psychological responses to diabetes, since I'm a psychologist, and I thought that when I read a lot on the Facebook pages, or when I read the Facebook pages, often I worry about both, or I'm concerned about both the caretakers, mostly the parents and the kids, and sometimes the older people with diabetes, but mostly the caretakers and the kids, because of my experiences growing up with diabetes, which I've come to realize are very different today for children Because of the treatment, but so I thought maybe it would be good instead of talking about the physical nature of diabetes, to talk about the psychological, yeah, okay,

Scott Benner 8:51
I'm up for what you're up for. I had a great time when you were on last time. I find you to be really thoughtful. And I mean, no lie, about a month ago, you just sent me an email that just said, Let's do a podcast about thinking about death. And I answered back and asked what you had in mind, and when you talked about, you know, in your email a number of different things, but it just felt like stuff was kind of piling up on you. Is that fair to say, like the Jimmy Buffet loss and then this thing about you going to Jocelyn to get your you called it your pre death workup. What was that? Yeah, should we talk about that? Yeah, I want to know, because it's not something I'd ever heard of before. When I tell you about cozy Earth, I'm usually talking about the discount use Juicebox at checkout to save 40% I don't think I take enough time to tell you about the quality of their products, superior softness and enhanced fabric that is durable and won't pill. It's guaranteed for 10 years. Temperature regulation, the cozier, the sheets that I have are incredibly breathable. You're going to sleep several degrees cooler than. Normal. These products are made responsibly. They're durable, and there is a commitment to quality, so much so that you will get 100 night sleep trial on the sheets and a 10 year warranty. Why don't you let cozy Earth create a sanctuary within your home? That's your time. You want to be comfortable sitting in those sheets or lounging in your joggers? Maybe you've just returned from the gym or completed a hard day of work, jump into the shower and the next thing you know, you're drying yourself off. You feel like a princess. That's how I feel. I feel like a princess when I dry myself off with those towels. I really do same as when I get into the bed and when I put on these great clothes, cozy earth.com. Use the offer code Juicebox at checkout, you will save 40% off of the bamboo sheets, the bath sheets, or whatever else you decide to buy@cozyarth.com Today's episode is sponsored by Medtronic diabetes, who is making life with diabetes easier with the mini med 780 G system. The mini med 780 G automated insulin delivery system anticipates, adjusts and corrects every five minutes. Real world results show people achieving up to 80% time and range with recommended settings, without increasing lows. But of course, Individual results may vary. The 780 G works around the clock, so you can focus on what matters. Have you heard about Medtronic, extended infusion set? It's the first and only infusion set labeled for up to a seven day wear. This feature is repeatedly asked for, and Medtronic has delivered. 97% of people using the 780 G reported that they could manage their diabetes without major disruptions of sleep. They felt more free to eat what they wanted, and they felt less stress with fewer alarms and alerts you can't beat that. Learn more about how you can spend less time and effort managing your diabetes by visiting Medtronic diabetes.com/juicebox

Sandy Schwartz 11:56
Okay, so Jocelyn has a program when you've had diabetes for 50 years or more, that you can get a ad. You know, I got my 50 year metal and thought, Why did I do this? But along with that, they invite you to come there for testing, so you can be part of a study. And I had never done it for one reason or another. I mean, I wanted to they had some issues in their program where they kind of fell off the wagon for a while. A friend of mine's husband died, and he left his body to something called, I think it's called Genesis, and it's a program where they use your body or your organs for teaching, and then they send your family, they cremate you and send the remains, and then you do what you want. And I thought, wow, I should give my body to diabetes research. So I called Jocelyn, and to make a long story short, I went to Boston. They put you up at a hotel next to Johns Hopkins, or wherever they are. It's in that big Medical Center in Boston. It's not Johns Hopkins, because that's a Maryland but anyway, you pay for your ticket and they reimburse you up to $1,000 and so I went to Boston. I went on a Sunday, I found out where their art district was. I went to a art festival and artists workshops, and ate seafood for every meal, and and did my what I called my pre death workup. So they studied my brain, my kidneys, my eyes, and I got this incredible MRI, where they gave they gave me different shots, chemicals, IV to do different things, like get my heart racing, to look at my digestion, to whatever they looked at, I got a great report from it. I don't mean great, like, positive, although it was positive, but I mean things that I didn't even know I had. Like, I have a lot of indigestion, and I take medicine for that, and they said I had a hiatal hernia. I'm like, Oh, no wonder. So now when I die, I have a phone number that my family is supposed to call, so I took my organ donation thing off of my driver's license so that now what happens is Jocelyn sends someone to the funeral home to harvest what they want, and then my family does what they want with the rest of me. I mean, I'm going to be. Cremated and put in the ocean with a program called the Neptune society, with all my dogs whose ashes I have, but that has nothing to do with Jocelyn. That's just me. Yeah, that's

Scott Benner 15:11
your wishes. You're going to have your ashes put in the ocean along with all all the pets you've had through your life. Yeah. Oh, it's lovely. Did it feel like a big leap to do this, to donate portions of yourself for research?

Sandy Schwartz 15:27
Just felt like the right, you know, I wore the first insulin one of the first six adults to wear an insulin pump in 1979 for research, I participate in research and diabetes research a lot, and since I wanted to be cremated anyway, it seemed like the right thing to do. Calling it my pre death workup was a reality. I think,

Scott Benner 15:51
do you feel like you're I mean, this is a weird question, because nobody knows when they're going to die, but do you feel like you're dying soon, or do you just feel like you're now just Ultra aware of it.

Sandy Schwartz 16:00
No, I do not feel like I'm dying soon. My father lived. He was nine over 95 and I am super healthy, but I think there's a time in your life when you don't really think about it. Or maybe for me, I've always felt kind of immortal, which I'm not sure is that healthy, but it's just who I am. Yeah, and I don't think it's right or wrong, it's just who I am. And I just think that's a time in your life when you see the people around you not be as healthy, or maybe, you know, lose their life, and you think, wow, those are my contemporaries? No,

Scott Benner 16:42
and you don't talk about it much, right? But, you know, because of all the thing, all the things that you've done, the research and community stuff, like, you know a number of people with with type one through your life,

Sandy Schwartz 16:53
I know a number of people, yeah, I've worked in the industry. And people with type one tend to work, you know, tend to gravitate toward that. So, yeah, I know a bunch of people.

Scott Benner 17:05
So then the psychological part of this that you want to talk about, I don't know how to lead you through this. So you said you made notes. I guess I just like to hear them. Well,

Sandy Schwartz 17:16
it all stems from, I, I follow you on Facebook more than I listen to the podcast, but I do listen to the podcast, and like I said, I react strongly, sometimes to the parents who have let diabetes affect their family as much as they have. So I start thinking about grief, and I think once you get a diagnosis of any chronic illness, you might grieve if you break your arm, because I might not be able to go scuba diving for a month. But that's just acute it goes away. It's no big deal. You forget it. But the chronic, chronicity of diabetes, of course, you're going to grieve. I mean, it would be crazy if you didn't grieve the person who is losing the lifestyle they had previously, and the caretakers of the person who is losing the lifestyle they didn't have previously. So accepting the fact that you're going to grief is important, not resisting it, not denying it, but allowing yourself to go through the whole grief responses is normal, natural, important, unless it doesn't go away, unless it's just chronic, the grief, not just the illness, but the grief.

Scott Benner 18:52
And I see a lot of people

Sandy Schwartz 18:56
who continue grieving. They don't get through the grief,

Scott Benner 19:00
right? Well, let me ask you professionally, then, is that something that a person has control over? Do you think? Yes,

Sandy Schwartz 19:08
I think people have control over their emotions, okay? And if they can't, they need to get help with it. Animals don't grieve. They accept, oh, I'm talking about like other animals, other than humans, to our knowledge, but they they live every day, and if a dog hurts their leg, they start limping right or if they lose a leg, they learn to walk on three legs. They still chase squirrels. But we're humans, and so we go through the psychological process that often we need help with. And of course, it's normal and natural to understand that life is going to be different than it was yesterday, and as far as we know, it's going to be long term forever, until it's not when people. People aren't resilient when they let that change the positivity in their life. It concerns me, and it concerns me because they model that for their children. I

Scott Benner 20:12
sometimes think that it's not even the loss of something specific, it's more of the loss of possibility, or the idea of possibility, like they don't know. Like I was just listening back to an interview I did recently where this woman said, you know, my kid was diagnosed, and when I found a community, it was very helpful to me, because I saw people out there just being vibrant and living. And then she thought, Okay, well, then the things I thought my daughter was going to lose, maybe she won't lose. But when I pressed her about what she thought her daughter was going to lose, she didn't really know. She was just fearful that something had changed. And therefore, this thing, or things that were coming in the future that she couldn't put words to, because she wasn't certain of what they were going to be but they but she was for sure, certain they just weren't going to happen anymore. I think that's why people like seeing athletes that have type one, for example, did any mean like they go, Oh, okay, well, they're doing it. Then it's okay. Then, right? But you're saying that some people have that feeling and never break out of it, but they could, if they had help, if they didn't know how. I mean, how would you break out of it if you didn't need help just move on? Is that?

Sandy Schwartz 21:26
Well, I think you do a good job with your work. I mean, there's modeling happening from the people who have moved on, from the people who do learn to integrate diabetes into their lifestyle, instead of making it the biggest thing in their life, the people who accept it, the people who still go to Disney World, the people who allowed their children to play sports, the people that find a way to to make diabetes part of their life.

Scott Benner 21:57
Yeah, I mean, you just did it really. You just said, I'm 71 I flew to Boston to do this thing, which is so kind of you to do for everybody with diabetes, but then you're like, Well, I found an art festival and I went out and I ate food and I hung it out The Art Festival. Like to me, I think that if I was a parent of someone who was recently diagnosed, or an adult who thought, like, I can't get my life together, you know, because of this thing, I'd hear you say that and think, Oh, well, she did it. I could do it too, but then that's just how I work, right? So I think there are some people who hear that and think, Well, she did it, but she's special somehow. Or I bet she doesn't have the kind of diabetes that I have or, you know, and that's why I always wonder about how much of people's ability to believe that it's going to be okay is rooted in the care that they receive, or the understanding they have about how their insulin works. That's why, I think that's the most important piece of it, understanding how the insulin works, right?

Sandy Schwartz 22:49
How To Become An external pancreas when you don't have an internal or when you don't have endogenous insulin production, how you can use exogenous insulin production yourself produce? Well, it's not production, but how can you use it to mimic everything you had before? Yeah,

Scott Benner 23:10
because you're not afraid to walk out into Boston, buy food you've never had before, have exercise and get involved in situations that you're not really certain of how they're going to go. But you know how to take care of your diabetes. When

Sandy Schwartz 23:23
you said that, I was like, what I never even thought of that. I mean, I was like, What's he talking about? Diabetes is part of who I am. It's It's just what I do. Yes, I would never think about not going to an art festival or eating lobster every night because I have diabetes, I I'll deal with the fat when it happens or not, because now my pump will take care of it eventually.

Scott Benner 23:51
Yeah, yeah. But could that be because that when you were first diagnosed, honestly, maintenance really was just like giving yourself an injection in the morning, so you weren't really that aware of the intricacies of it. And, you know, if you got dizzy, you drank something, and that's kind of it, right, like, so that was diabetes for a while, and then you had it for a while. You were you didn't have big problems. Technology and insulin came along. It got easier and easier, and now you don't think about it. But I'm saying a person diagnosed yesterday. Don't you think they go out and they think, Well, what if my kid needs something and I don't have it, or, like, anything, like, you know, fast acting glucose, what if they have a seizure and I pull out the glucagon, I drop it and it breaks, or, you know, I forgot it in the car, something like that. Like, I think those. I think people think about all of that in the beginning, and I do think they can not let it go, but maybe just meld it into, like moving. There was a time in my life where if my daughter was like, Hey, let's go out today, and we're gonna, I don't, we're gonna go to the mall, and I'd say, well, which mall are we gonna go to if we're gonna go to the one that's close to our. House, then let's just go. But if we're going to go to the one that's 45 minutes away, then maybe we should bring insulin and, you know, a pump change. And if we're going to bring a pump, let's bring a CGM, because if something goes wrong, I don't want us to have to leave. And that's happened in our lives. Like, we've driven an hour and a half from our home and had a pump failure, for example, like, you know, a site just goes bad, and then if you have it with you, it still sucks, because you got to go out to the car and do the thing, and it interrupts your day, but at least it's a couple of minutes you're back at it again. But I've also had it happen, where we were just we weren't prepared, and then you stop what you're doing, get into your car and drive the hour and a half home to change your pump the whole time watching your blood sugar go up and up and up and up and up because you don't have your insulin pump, etc. Like I think people think about that stuff, and I don't imagine that it strikes you the same way. Of course it does. It does strike you that way. Oh my

Sandy Schwartz 26:00
gosh. I never leave the house without at least a syringe so I can get insulin out of the pump if the pump fails and I can take insulin, I never leave without fast acting carbohydrates. They're all over my car, my purse, my everywhere. But

Scott Benner 26:17
you don't you're not worried by it or upset by it. You just do it. It's just the thing you do, right or no,

Sandy Schwartz 26:24
yes, I'm not worried or upset by it, but I I used to say that taking care of my diabetes is the most important thing I do. Taking care of my job is the second most important thing I do, and taking care of my son is the third, because if I don't take care of my diabetes. I can't work, and if I don't work, I can't take care of my child. I mean, it is the most important thing in my life, but I don't you're not burdened by it. It's not a burden, right? It's not a burden. It's a pleasure. Because, finish that thought, because it keeps me healthy, because I'm good at it, because I want to live because I want to live healthy, because I don't want complications, because it's part of who I am, because it's just what I did.

Scott Benner 27:10
So are there people out there who don't have that, I mean, because it keeps me healthy, because I want to live, like, what if I'm out there and I'm not thrilled about life to begin with, and then diabetes comes along and you're like, Oh, well, now there's, you know, all this, I gotta put all this work in just to be healthy for a life I'm not enjoying anyway. Does that matter? Yeah, it would be very sad, right? But I think there are some people that are in that situation. I don't think there's, I mean, I don't think there's as many as not, but I do think some people are in that situation. I also think or wonder, I guess, I guess, I wonder a lot about how much of what I see online is newer diagnosed people, or people who are so frazzled by all this, and they finally figured out that there's, there might be an answer out there, and they're looking for it now. And so when you catch them in that moment of newly diagnosed or very confused, that it feels like everyone's like that. But I just think, I don't think that's the case. I just think those are sometimes the people who speak up because they're the most scared and looking for answers because, like, you said something earlier, that people say all the time, like I see parents doing I see these group of people doing something, and I just wonder, if that group is not like I wonder, is it smaller than I think it is larger than I think it is, or is it as it seems? Does that make sense? I hear

Sandy Schwartz 28:34
what you're saying. I'm not sure. Yeah, I don't I think that people either resist or resent or fear illness, diabetes, disability, or judge it like maybe in the past, they've judged people with a disability, and now they have one, and they're judging themselves. I don't know if where that continuum is between reject and accept. And I think it is a continuum. I think people could draw a line and put reject on the left, accept on the right, and they could put a.on that line where they are with diabetes, and then maybe put a star or a line or something where they'd like to be and and work toward making their life better, accepting their diabetes, modeling accepting for their children. I mean, if they freak out, because let's see what was the most recent thing? Oh, there was a lady on the Facebook page about co parenting, and I felt so bad for her when I first read it, because her husband didn't take care of their child the way she would, and she watched the numbers. To me, it seemed that he was doing an adequate job. It doesn't work. Just wasn't the way she would so I felt badly for her. At first I thought, Oh, that's horrible. What would I do? And then I thought, well, she can't change it. I mean, the kid's not going to die, and if she can't work it out with him, it's going to cause her a lot of grief to worry about it.

Scott Benner 30:21
It'll transfer over to the kid too at some point. Because people used to ask me, like, well, you know, what's this podcast going to be about when Arden goes off to college and you're not as involved with her and everything? And I mean, God, I almost said my journey. That really makes me sound like I feel, I know, but it makes me feel stupid saying that. But it is your journey? No, I know our

Sandy Schwartz 30:42
life is ever is our journey, yeah? And it involves taking care of a child with type one diabetes, right? Yeah.

Scott Benner 30:48
Well, part of that journey for me is realizing, and by the way, I always realize this, but it's accepting that Arden's not going to do this exactly the way I did it. And then it makes me think of the story you just told, because no one's going to do it exactly the way you're going to do it. So whether that's you and a spouse or you and a kid like you can make that argument when they're younger, like, look, it's, you know, they're under 18. There's going to be a a level of, I don't know, effort or, you know, or outcomes that we're going to shoot for, and we're gonna, we're gonna push towards them. And if we don't, if we don't put in that effort, I'm gonna speak up, because I'm the parent, we're gonna make sure that we push towards that effort. But there just will be a day they'll just, they'll leave, you know what I mean? Like, what if it's to go to college, or if it's to, you know, leave your home and get married or whatever it is, like, one day they're not going to live with you, and then they're going to do it the way they do it. And if you can't be accepting of that, then that's puts you in that, that position that you were talking about, of just it'll drive you crazy, because you're old, you know what I mean, to struggle? Yeah, no. And especially, by the way, there are going to be times when you're right and the person isn't doing an adequate job for themselves, and maybe they've made a decision that, you know, this is the level of health they're accepting of. I'm not talking specifically about Arden and not saying her name. I'm just saying, like, this is a thing that I'm aware of now. It's happening, and before it was all academic, I was like, one day she'll grow up, and she might tell me, like, ah, leave me alone. You know what I mean? Or I'm, this is good enough for I'm, I'm on top of it. You might not like the way it's being handled, but I'm handling it. And if you can't accept that, like quickly, you cause a real divide in your relationship, and that, that doesn't help anything either.

Sandy Schwartz 32:32
You know, oh no. Totally agree. Yeah. So if we, if we think about the co parenting or your relationship with Arden, or whether or not your child's gonna play sports, or all the things we've already mentioned, I think it's a priority. So with the co parenting, if your child sees you frustrated with your spouse or your ex spouse, and that that's the primary thing, then you're going to cause issues between the parents, which is going to cause issues with the child. So it's a priority. What's most important? It's also modeling, yeah, your behavior. We model for our children, the way we are is the way our kids become, for better or worse,

Scott Benner 33:22
right? No, for sure, it could even go ways you don't expect. Like, let's say, you know, your kid's 13, the, you know, in this example, the the mother saying, well, the father doesn't do a good enough job, and I'm mad at them because of that. And that is something that the kid sees, and everybody sees. And then what happens if one day the kid grows up to be more of a manager of diabetes, like the father than the mother? Then what you what you've been saying then for years, is the way your dad does this, I'm not okay with I don't like this, and it's caused friction between us. You don't realize that if the kid starts doing it that way, the kid is going to immediately feel like that's how you feel about them. That's a good example, yeah, and I know that through parenting, I see that's that all the time, so And

Sandy Schwartz 34:08
you're also generalizing feelings about the other parent, right? So you're generalizing feelings about the Father, and then the child might choose to take sides, and you're just causing a rift that doesn't need to be there.

Scott Benner 34:22
Yeah. Again, sticking with the example of the mother like Now you look like the crazy one to the Father and to the kid, because they're like, I'm living fine. You're the one who's yelling and screaming about all this not being okay, and it's not being done well enough. Also, by the way, I don't know the example that you're referring to, maybe they're not doing a good job like you, you feel like their father was doing an adequate job. But what is adequate? You know, when we're talking about, like, the seriousness of of diabetes complications, so I don't know if

Sandy Schwartz 34:52
they don't give insulin or they don't treat lows, then you know, you need to go back to court. Yeah, it is so dope. Difficult, like, where is that line? Where do you say, oh, no, this isn't good enough, or this is going to kill my child, if it's not good enough, and if it's going to potentially kill someone, then you got to go back to court.

Scott Benner 35:12
Yeah? But also, there's the unknown part of it again, which I again, I think makes up maybe the most difficult aspect of it, which is, like, you know, you went got your check over, and your stuff looks good, right? Kidneys look good. This looks good. That looks good. That could be random luck. You don't even mean that could be random genetic luck. There could be a person out there that takes significantly better care of themselves than you did, who will have complications that you don't have, or vice versa. There might be people out there just like and it, for some reason, it doesn't touch them the same way.

Sandy Schwartz 35:46
Oh no. It's, it's medically, it's, it's not, it's random, and it's definitely, I did a terrible job. For 19 years, we didn't have an A 1c we didn't have a blood glucose meter. We had nothing. My first A, 1c after 19 years was, well, if, if we extrapolated into today's terms, it probably was 1213, I've lived like that for 19 years. It is luck. It's also has to do with comorbidities. I mean, my blood pressure is good, my cholesterol is good. I have survivor's guilt because of people who succumb to this disease or have complications from the disease, yeah. But Scott, I have two other chronic illnesses, and they aren't so good. And so it's a matter of accepting and learning to live with them and treating them rather than freaking out about them and thinking that they're going to kill you instead of you controlling them. Are you willing to share what those are? You might as well just call it asthma. But it's not. It's intrinsic asthma. Bronchiecta says I take steroids every day. Wow. On the days that I take the same amount every day, my insulin, you know, I've compensated for it the same way you would with with food, kind of like you would with high fat food, right? But on the days where I need to take a lot of steroids for different reasons, like this weekend I'm going to go get with my flu shot. Well, I can't get my flu shot without taking a front load of steroids, because I have horrible reactions to the flu shot because I'm immunosuppressed. So I will take a bunch of steroids. I'll go get my flu shot. I'll put my pump on auto mode. I'll put one of my basal rates that I have set for that, and if my blood sugars aren't great, they aren't great, it's just what I do. Yeah, if I have to go to the hospital because I can't breathe, I walk in the hospital. I tell them what I need. They do what I tell them, and I deal with it. It's not diabetes. If I if I had a choice to get rid of diabetes, or let's just call it asthma, I would definitely choose asthma. Wow. It's that impactful for you. It's that impactful because of how it affects my diabetes. What's the other thing? I have horrible osteoporosis from long term steroid use so I can break bones easily. I have to be careful. I It's just more careful than than you would need to be normally, yeah, but it's not like something I think about every day like that as smart diabetes. Teddy, you're gonna

Scott Benner 38:35
be one of you gonna be that 100 year old lady on the local news smoking cigarettes on her birthday, being like, Hey, I did it.

Sandy Schwartz 38:41
I don't smoke cigarettes, but I'll be on Juicebox when I'm 100 I don't

Scott Benner 38:45
know if you make it to 100 you might want to take up smoking. You might want to see what. What else can I do? You know what I mean? Oh, my gosh. Well, I would love to have you back on when you were 100 I hope I can listen. Let's hope I can stay alive that long. What would that make me 7383? She'd be fine. Yeah, I'd be fine. You let's hope I'm trying to, I'm trying to stay alive, you know. Okay, I don't know if we're getting to your to your reason for coming, though, or if you're just enjoying the conversation. I don't want to, I don't want to not help you talk about what you talked about. Because again, to go back to this email, I said things kind of piled up on you. There was Jimmy Buffet, then there was the thing at Joslyn. And then you emailed me because, like, in a response, like, Maggie Smith had passed away, and even that seemed like it had had like a like an impact on you. Well, then you started talking about your friends who had diabetes complications that you don't mention online and stuff like that. And it just felt like it, I mean, it gets heavy, I guess, at some point,

Sandy Schwartz 39:40
right? But this doesn't need to be my personal therapy session. So I started thinking about facing mortality, but then I thought that is not significant for your group.

Scott Benner 39:54
Really? Do you think because they have a a different management. A plan than you had when you were younger. No, I

Sandy Schwartz 40:02
think it's because they're young and their parents or their their I mean, this is not the 50 years plus diabetes group, so I thought this is probably not relatable, and it might be just scary for the for your population. So then I started thinking about, well, what about that mortality? What can we talk about that might be relatable? And I, I mean, I'm a psychologist, and I read it's not just about behavior. People think it's taking care of diabetes as a behavior, but there's also the emotional part, and I think that it's just as important, or maybe more important, or longevity. And really, you know, the mind and the body work together. If you walk around being fearful or grieving or depressed or in denial or angry about diabetes. How does that affect you emotionally, and does that affect your longevity? So I think it morphed into more than my own mortality, and morphed into what would be relatable for Juicebox,

Scott Benner 41:18
yeah. Well, what did you come up with that you think is relatable besides what we've spoken

Sandy Schwartz 41:22
about already, all those things I just said, to live your life where diabetes is most important, so that you can be happy, so you can go to the fair. Do you

Scott Benner 41:34
see that thought kind of corresponding with because I think the way I talk about it is, I say that if you put in, like, a little bit of effort up front, that everything else gets easier. But I mean, I don't just mean blood sugars, I mean everything else, right? I don't know if it's commensurate to but you don't, you don't jump in your car to go on a, you know, on a on a nine hour drive with a quarter of a tank of gas, and just start off, you know, you go to the gas station, you fill up, and you clean your windshield, and you make sure your hair, you know, the tires, have air in them the way they should. And then you drive away like and now you don't think about those things anymore. They've been handled. And I do think about, I guess, a lot of things like that, but diabetes, especially like if you take the time up front to understand how the insulin works and get your settings right, and stay flexible as you're growing and your needs are changing, and just do the things you need to do first, then the rest of the day is just easier, and which makes the rest of the week easier, which makes the rest of the year easier. I say it as much as I can, because I believe heartily in what you said earlier, like modeling is how we get everything done like you don't accomplish anything by telling people what to do. I just don't think that works. So, you know, you stand out in front of them and you just, you know, you follow. What do you do? You lead by example, right? Except, and you hope people and I see it sometimes. Somebody said online the other day, I used to be mad at Scott because of how relaxed he seemed about his daughter's diabetes. But now I realize, like, I think they said, they went back and listened to the earlier podcast and realized that it wasn't, I wasn't always like that, that it was a process. Of

Sandy Schwartz 43:13
course, it's a process and it's hard. It's hard work. I mean, I don't minimize how much energy I put into taking care of myself, I just incorporate that into who I am. It's not separate. It's who I am. It's just what I do. I mean, people say you get up, you brush your teeth, and then you take your insulin. Well, it's a lot more than that, but you don't think about not brushing your teeth, right? I'm not dismissing how hard it is, or if it sounds like I am, I don't mean to dismiss how hard it is. It's It's freaking hard. It's just I have made it so much a part of who I am that I don't know how to do it any differently. I ran a therapy group at the University of Florida in 1979 The same year, I wore my first insulin pump and took my blood glucose for the first time. So I was on a huge learning curve then, and a girl in the group who it was a group for chronic illness and disability, and she had a physical illness, and she used crutches, and she resented she was beautiful, smart, but she resented walking on those crutches so much, and she asked in the group one day, if you could give up diabetes, would you And I had never thought about it, and that was 19 years after I was diagnosed, and I had never thought about it, and I didn't know what to say, and I told her I'd tell her next week, and I went to therapy about it, because part of me was like, hell yes, and the other part of me was. Who would I be?

Scott Benner 45:00
Yeah, I've heard that response from people a lot actually, like, this is so much a part of who I am that I don't know what would happen if it all just disappeared. It might feel like loss. I think it's important to point out that the amount of effort that you put into your diabetes and that everybody does who's you know? Well, let me just say you for now. Okay, the the amount of effort that you put in to be healthy is probably the level of effort we should all be putting into ourselves to be healthy, diabetes or not. And I've heard people say that. I've heard people say I'm grateful for diabetes because it forced me to take care of myself. And I think I'm healthier today with diabetes, and I may have been without it, which, again, is a thing you're going to need to be through your journey a long time before you can have that, that thought, that idea, deserves some thought, right? Because there's people running around unhealthily all over the place, and because they don't have diabetes, you just think of them as, oh, they're healthy, they're fine, but you don't know what their end is going to be. You don't know how far they're going to make it, or what's going to befall them. Maybe finding out about your diabetes, for a lot of people, helps. Maybe it speeds up some people's demise too. I'm certain it does, of course, yeah. But who are you going to be in that? I mean, if that's the game, who are you going to be in the game like I think that's the personal decision you need to make. And maybe if we talked about it, more and more people would be open to making that decision. So I don't see this as a bummer of a conversation. I think some people won't listen to it, but for those that do and decide, you know, maybe I gotta lift up my head a little more than I do normally, whether that's a parent like me, or, you know, a person living with diabetes like yourself, like, like, you know, that's it, right? Like, life's a grind, and you gotta grind. It's not gonna get my my son was in here the other day, and I said, You having a good day? And he goes, I'm not sure if I've ever had a good day. I said, What's that? And he said, you know, like one of those days where you wake up and everything just works out great. Works out great. I was like, Oh, if that's how you're measuring a good day, then yeah, maybe you've never had maybe no one's ever had one. That's

Sandy Schwartz 47:08
interesting. Yeah, I think I'd like to add to what you said about working hard at diabetes, that you can work at heart at diabetes and you can resent it, or you can work hard at diabetes and you can accept it, and even if you work hard at diabetes, but you resent it, if not your health, but if not your physical health, but definitely your mental health, is going to be worse than if you work at diabetes and just accept it,

Scott Benner 47:37
I think you could resent it and still be proud of Your effort, and that even might be valuable, you know, like, but I take your point like resenting anything being angry through your life. I don't know, Sandy, if there's, you know, actual research that would tell you this or not, but I mean, I think it like you said, Mind, body goes together. If you're run around, tired, angry, resentful all the time. I think it's going to have a poor outcome on your faith, you know, on your life. Of course, yeah,

Sandy Schwartz 48:05
your mind and your body are all one, and the dichotomy that we place on that in the western world is a death sentence, one way or another. I mean, let's be happy. Let's we get one life. Let's live it. Whatever we have to do, yeah, to make it to make it our own, to make it good, we

Scott Benner 48:26
do sort of have, probably because of as much contact as we have with like, you know, social media and content. Like, right, you can there's no shortage of people's opinions and arguments and everything. Like, we do have an outrage culture, where being outraged about something is part of a lot of people's day to day. You know, politics. Who knows what? You know some geez, I've never seen people be angrier about things that I can't This is my son and I were talking about this last night. He goes, Dad, I saw one of those cyber trucks. He goes, I thought it looked really cool. And he said, but man, some people are really angry about how it looks. And I said, some people are really angry because of the politics of the guy that owns the company. And I said, it's so interesting because I have a refrigerator and I have a car and I have an oven and I have furniture, I own, all these things I don't know the first thing about the CEO of any of those companies. You know what I mean, like, like the guy who runs the company that made my television could be a monster. I have no idea. But the guy who makes Tesla is runs around yelling his his opinions out loud, where you can see them on social media, and now people either love him or hate him. Some of that anger you see towards that car could literally just be because of the guy. But when I stop and think about it, I don't understand why anybody's got the energy for that. Do you know what I mean? Like, I don't know if that makes sense or not. Like, I don't have the energy for that. Like, I needed a sofa. I bought one that I thought looked like it was gonna hold up. I hope the guy who ran the company. He's not a, you know, a lunatic, but if he is, I don't know if I have the time in my life to find that out. I don't that makes sense or not, but no,

Sandy Schwartz 50:09
I mean, you've said two things while you were talking that interest me. One is outrage culture, and the way you put it, I haven't thought about it, but you're right. We do live in an outrage culture, and the division is is bad. But the other thing you said which interests me even more, and it's probably because I don't I've thought about it. I love hearing you talk about your son, because Arden gets so much attention that I often wonder how the other children, and not just jurors, but families of children with diabetes, how the other children feel. So I love that. Twice during this conversation, you've said something about your son, yeah,

Scott Benner 50:54
no. I mean, he's a I love him. He's I love hanging around him and talking to him and hearing his thoughts about things and sharing mine. And I love seeing where, what? Sometimes I say something and he's like, yeah, and then other times he goes, Oh, I think you're off on that. Like we've built a relationship where if he thinks I'm wrong, he tells me it's not in a shitty way. You know what I mean? I feel helped by him as much as I hope he feels by me. Going back to the outrage idea, it trickles down through everything. You know, insulin pump company says they're going to make an app and it comes out three months later than they say it's going to you might think that they, I don't know, like, set the world on fire, the way, you the anger that comes from people. They said this was going to be out in June. It's June. It's not here. And I'm like, Oh, my God, you're fine. Just relax. Like the thing will come out eventually,

Sandy Schwartz 51:38
right? And the reason it hasn't come out is because there's glitches. Please fix those before it comes out.

Scott Benner 51:43
Let's not send it out beforehand or whatever. Like you don't know why it's held up, but it is. I watched my wife have a thing at work. It got held up, and she had to go into a meeting where people were like, all up in arms. This thing didn't happen on time. I get to see her at work, and she's in the, you know, she's in there, and she's trying to explain it to people and everything. And finally, she just has to stop and say, like, look, the guy that was running this died. We're trying to get it together. Like, you know what I mean? Like, you don't know why stuff happens. Like, it's so simple to step back and go, Oh, they're not trying hard enough, or they should have just hired more people. Or, you know, like, you don't know what's happening, and maybe sometimes it is. People are inept, but you know what? Like? That's why I lean so hard in my life on that, that parable, the this is water, which David Foster Wallace gave that commencement speech. As part of the commencement speech, it's got to be like, 20 some years old by now. You can find it on YouTube. It's called, this is water. You can listen to it, but part of the commencement speech, he just delivers to these people the idea of like, you don't know why other people are doing what they're doing. They might have a really good reason, and they might not. But what good is it to you to assume they have bad intentions? Because you'll never know for sure, and it just makes you angry, and that anger is not good for you to just assume they're trying their hardest and it's just not working out and move on. And I just I do so much with that idea in my head, when my son comes to me and says, I saw a man giving another man the finger because of the car he was driving, and I think to myself, who could possibly care that much. I don't understand even like there's wars overseas, and I hear people arguing about them. I see two people Sandy, God bless them. I see two people I know for a long time. I don't think they know shit about anything, okay, but suddenly they seem to understand Israel and Palestine. And I'm like, you guys don't know what day your recycling comes, and you feel like you're qualified to have like, a position on this, strong enough to like, hate the other guy in the argument, like, and I'm not telling you, I know what the right answer is. I'm telling you, it's interesting to watch two people who are like, have nothing to do with this. You know what I mean? Like, they have no background in it. They have no education in it. They've never been personally involved in it, but they know for sure, like this. And I think I see people deal with their diabetes the same way they pick something and they get angry about it. I wish everybody could hear me say it, and believe me, like, this is water, okay, like none of this matters. Tomorrow is going to come, like, pick some solace from the way Sandy, like, described a broken arm. She's been alive long enough to know if you break your arm, you keep living, and one day you forget about it. And I just think that a lot of times we could apply that to to a number of things.

Sandy Schwartz 54:35
You know, yes, acceptance is the name of the game. Often,

Scott Benner 54:39
I usually say, often, the best thing to do is nothing.

Sandy Schwartz 54:42
I like that. Yeah, I like with the water example, too. I'm gonna go listen

Scott Benner 54:46
to it. Well, it's wonderful. It's just, it's just a commencement speech given by this, by this writer, who sadly took his own life some years later. But it made so much sense to me that I actually have a stack of the commencement speech pre. To just like, a small, like, like, kind of novelty book. And I give them to people when

Sandy Schwartz 55:04
they graduate, I love that. I'm gonna go listen to it right now.

Scott Benner 55:08
I give them to people, and I say, Listen, just please, if you take nothing out of this except for this one thing, you don't know why other people are doing what they're doing, and spending a lot of time wondering and being angry about it is bad for you and doesn't do anything to change it. So I don't want you to get me wrong. Like, you know what I mean? Like, if, if somebody did something horrifying, I'd say, All right, I'm not going to buy their sofa. Like, you know what I mean? It turns out, the guy that made my sofa burn down Atlanta. I won't buy a sofas.

Sandy Schwartz 55:42
But the fact that we know or think about that is that really what's important, right?

Scott Benner 55:47
And there are so many people in the world doing good, and so many people in the world doing badly, and I think that the only reason you're aware of who's who, again, going back to like, because of like, social media and people's desire to just like, tell you know. Like, just be out. Like, I know you think you know them, but I know you, you don't not to the level you believe you do. That's all. It's how I feel about it. I don't think I can know enough about how someone feels to make a judgment about a person I've never met before. And, and I'll tell you, like, this sounds I know this sounds silly like, and it makes me sound silly like I have a low level amount of fame, a very tiny little bit in a very specific place. And I watch people talk about me like they know me. And when I hear them, I think that's not just me not seeing myself like that's just fundamentally wrong what they just said, and it has stopped me from having like, those thoughts about other, like, massively famous people. You know, you used to like, you see a news story and you'd be like, ah, that guy sounds like an asshole. I just look at it now and I go, I have no idea if that's right or not. So people like to assume, yeah, I guess so. And I don't know. I just think that overall attitude gets applied to so many different things that you could end up applying it to this as well to diabetes as well that whole idea of like, I'm gonna be angry. I know someone's trying to screw me. I know that person's doing badly. I know that company's messing with me on purpose. I'm trying to get somewhere. They're stopping me, like all of that talk is not good for you.

Sandy Schwartz 57:23
Okay, so let's take that back to diabetes. A parent is with a child, and the pump falls off, so the parent freaks out and makes it a huge big deal because the pump fell off, or the parent gets out the syringe they carry in their purse, draws up a little insulin, figures out how much they need to keep going on their journey. Which is better model for life? For life, not just for diabetes, for life,

Scott Benner 57:54
it's really the way to go with anything. Just like it's keep going, right? Just do the thing, keep going. It's not easy for everybody. I listen. Arden's got a perfectionist streak in her, and it's hard on her sometimes, right? My wife has it. My son has it. My daughter has I don't have it. I'm sort of like, well, I did it as good as I could do. I'll try again tomorrow, you know? And you can step back and tell people like, like, Look, I'm a successful person. I'm not holding myself to some crazy standard that's making me mental. When something breaks, I just go, oh, things break sometimes, like I don't understand any of that. I stay out of some of those conversations online because I don't want people because some cynical person will, like, paint me as an apologist. I saw someone kind of very upset the other day. They put on a CGM, and it was reporting a bad number for a couple of hours. And they were like, you know, and then the automated system gave insulin based on a number that wasn't right, and everything. And this is very dangerous. And people were like, you have to contact the government, like, you know, you need to tell the FDA. And although it's like, I was like, Oh my God, just get a meter and test the reason I feel that way is because, do I want Dexcom libre anybody else, to make their CGMS better and better? I do. I want them to keep trying, and I want them to keep making them better. But in this moment 2024 that technology is as good as anything it's ever stood on this earth. Do you know what I mean? And like to lose sight of the fact that your problem today was that your CGM reported 70 points higher than it was and you got a Bolus because of it is to ignore the idea that Sandy was peeing on a stick and had a 19, A, 1c, it ignores perspective. So yes, you want them to do better, and you want to hold them to a standard, of course, and you don't want things to be dangerous, but you can't act like this is some horrendous thing that's just happened.

Sandy Schwartz 59:49
Well, you can act that way, but it impacts your life and the people around you negatively. Yeah,

Scott Benner 59:55
yeah. Well, and meanwhile, you're bad mouthing this thing that is definitely keeping you. Much, much healthier than you'd be without it exactly. Go with the flow. It's not lost on me, if the thing said her blood sugar was 500 and she was a little kid and it gave her a bunch of insulin, it would be really bad. But, you know, you have a meter for a reason, you should check if it doesn't seem right, like you have to pay some attention to it. It's not

Sandy Schwartz 1:00:17
if the if it said 500 and you don't feel that's what it is, then you get out your meter,

Scott Benner 1:00:22
yeah, right, and it sucks, by the way, and it breaks up your day. And I get all that, but again, so does

Sandy Schwartz 1:00:30
other things, like a car accident or electricity going out. I mean, it's life, it's what we live with. This

Scott Benner 1:00:38
is my point. I think it's your point too, by the way, yes, yeah, just diabetes is unpleasant sometimes, but it sucks

Sandy Schwartz 1:00:47
it does it does it show what other things do too.

Scott Benner 1:00:51
But you have a large part to do with how it feels. I guess I don't know how to put that exactly like

Sandy Schwartz 1:00:59
you're you have a large part to do with how you respond to it, yeah, your attitude, how you emotionally respond to it, how you let it negatively affect your life, or not negative. I don't want to say positively, but whether diabetes is a hindrance or whether you accept it. I mean, we, I know I use that word a lot, but acceptance allows us to live our life in peace. Attitude dictates everything

Scott Benner 1:01:32
right? And then whatever situation you're in, there are happy people who make a $500 a year of living somewhere, and there are hap and it's, is it great? I don't imagine it is, but there are people who find a way to be happy in every situation. And I'm not saying that there aren't some situations that are so overwhelming that you can't like you know, happiness is hard to find, and obviously there is, but I'm often reminded that, like the poorest people in America, are some of the richest people on the planet, exactly

Sandy Schwartz 1:01:59
because they accept what they have and don't wish it was different. It just,

Scott Benner 1:02:03
it just seems, you know, I mean, it sounds kind of hippie dippie to say out loud, but you like Jimmy Buffett, so I figured it's okay to say to you, I don't know, like, if you're not a depressed person, if you're not altered in a way that just makes it impossible for you, then you can, like, I don't know, brace yourself, stand up, pull yourself back together again and and just try to have a different attitude and just accept that it's going to go wrong sometimes, and you have to keep moving. These are basic ideas that I think have been said over and over again for, you know, hundreds of years to people so

Sandy Schwartz 1:02:35
Well, I appreciate this opportunity to try to encourage people to look at their life as something to be happy about, yeah, and something to live to the very best. Well,

Scott Benner 1:02:50
look what you did, even like it's not it's nice to you to come and spend your time, but look at you. You were in a place like Sandy. I don't know you that well, but I looked at your email. You were in a place, you know what I mean. You thought, I wonder how I could turn how I feel into a positive for other people. And you said, mate, can I come on your podcast and talk about this? So anybody can do something like that in their own life? You know, just make a positive step. I think,

Sandy Schwartz 1:03:16
Oh, I never thought about that. No, you did. Oh, thank you. Yeah, you did

Scott Benner 1:03:18
the exact thing you're asking people to do so, put your money where your mouth is. Okay. All right. Hold on one second for me, Sandy, thanks for tuning in today, and thanks to Medtronic diabetes for sponsoring this episode. We've been talking about Medtronic mini med 780 G system today, an automated insulin delivery system that helps make diabetes management easier day and night, whether it's their meal detection technology or the Medtronic extended infusion set, it all comes together to simplify life with diabetes. Go find out more at my link, Medtronic diabetes.com/juicebox this episode of The Juicebox Podcast is sponsored by cozy Earth. Cozy earth.com use the offer code Juicebox at checkout to save 40% off of the clothing, towels, sheets, off of everything they have at cozy earth.com Are you starting to see patterns, but you can't quite make sense of them. You're like, Oh, if I Bolus here, this happens, but I don't know what to do. Should I put in a little less, a little more? If you're starting to have those thoughts, you're starting to think this isn't going the way the doctor said it would. I think I see something here, but I can't be sure. Once you're having those thoughts, you're ready for the diabetes Pro Tip series from the Juicebox Podcast. It begins at Episode 1000 you can also find it at Juicebox podcast.com up in the menu, and you can find a list in the private Facebook group. Just check right under the featured tab at the top, it'll show you lists of a ton of stuff, including the Pro Tip series, which runs from episode 1000 to 1020 Five Okay. Well, here we are at the end of the episode. You're still with me. Thank you. I really do appreciate that. What else could you do for me? Uh, why don't you tell a friend about the show or leave a five star review? Maybe you could make sure you're following or subscribed in your podcast app, go to YouTube and follow me, or Instagram, tick tock. Oh gosh, here's one. Make sure you're following the podcast in the private Facebook group as well as the public Facebook page you don't want to miss. Please do not know about the private group. You have to join the private group as of this recording, it has 51,000 members in it. They're active, talking about diabetes, whatever you need to know, there's a conversation happening in there right now, and I'm there all the time. Tag me. I'll say hi. The episode you just heard was professionally edited by wrong way recording, wrong way, recording.com, you.

Please support the sponsors

---

The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!

Donate

#1458 Disappearing Targets

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio -  Radio Public, Amazon Alexa or wherever they get audio.

Lauren has managed T1D since she was 13, balancing ADHD, a strong family diabetes legacy, and raising two kids, while now exploring solutions for recent insulin resistance with her new pump.

+ Click for EPISODE TRANSCRIPT

---

DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome back to another episode of The Juicebox Podcast.

Lauren 0:14
My name is Lauren, and I have had type one diabetes since 2003 I have two kids, age 12 and four. They do not have diabetes.

Scott Benner 0:28
Please don't forget that nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. Don't forget to save 40% off of your entire order at cozy earth.com All you have to do is use the offer code Juicebox at checkout. That's Juicebox at checkout to save 40% at cozy earth.com Are you an adult living with type one or the caregiver of someone who is and a US resident, if you are, I'd love it if you would go to T 1d exchange.org/juicebox, and take the survey. When you complete that survey, your answers are used to move type one diabetes research of all kinds. So if you'd like to help with type one research, but don't have time to go to a doctor or an investigation and you want to do something right there from your sofa. This is the way t 1d, exchange.org/juice, box. It should not take you more than about 10 minutes. This episode of the juice box podcast is sponsored by the Omnipod five learn more and get started today at omnipod.com/juice. Box. Check it out. The episode you're about to enjoy was brought to you by Dexcom, the Dexcom g7 the same CGM that my daughter wears. You can learn more and get started today at my link, dexcom.com/juice, box. Today's episode of The Juicebox Podcast is sponsored by the drink I use every morning. AG, one drink. AG, one.com/juicebox

Lauren 2:07
My name is Lauren, and I have had type one diabetes since 2003 I have two kids, age 12 and four. They do not have diabetes. I'm married and, yeah,

Unknown Speaker 2:24
that's

Scott Benner 2:26
Lauren about it. I have, I have a question right away. Okay, you have two kids with two different men? Yes, I do. Okay, all right, because eight years there's only one reason to have a baby after having the first one in eight years. And that is, yes, exactly that reason, because everyone else would be like, it's okay,

Lauren 2:43
right? Yeah, no, I didn't. I totally forgot. Yeah, there's eight years between them. I had my son at two, at 21 and yes, okay, I was not married before, so i The person I'm married to now. This is my daughter. That is our child.

Scott Benner 2:58
I honestly don't care about your I get what you do is up to you. I'm just like, there is no way that you had a baby. Paid for it and took care of it for eight years and then thought, you know, we should do another baby? Yeah?

Lauren 3:10
Yeah, no, for sure. I mean, my 20s were interesting, yeah, I had a baby. So

Scott Benner 3:18
how old were you when you were diagnosed? I was 13. Okay, 13 years old. I know there's a little type one in your family, but it's recent. Is there any other type one besides your brother being recently diagnosed? Does anybody else have it? Yes, my grandfather had it. Okay. Grandfather and your brother. How long ago? Diagnosed?

Lauren 3:38
Uh, last October, I would say, with the actual diagnosis leading up to it was a little rocky, you know, just with our health care system

Scott Benner 3:46
here, you called Canada and said, I think he said, I think I'm sick. And they were like, get in line and come in nine months. Yeah, pretty much it, yeah,

Lauren 3:54
yeah. It was a weird, weird situation, for sure. Like, I was like, you know, Matt, I gotta test your sugar. He didn't want me to. He knew something was up. And then, anyways, I finally tested it, and I should have brought up the chart, actually, but here, like, I know our numbers are different, but here, you know, it was around 18 when he checked it at my house and and I just had said, like, tomorrow morning, you're off. You're off to the hospital anyway. So they came back with him. You know, type two. He's older, late 30s. He is actually a type one now they but I mean, what you would probably refer to as, like a lot of

Scott Benner 4:28
Yeah, for a while, probably how long do you think it went on for with him? I

Lauren 4:32
would say probably a couple years he, but it was last summer. He just looked bad. And you know this, like common symptoms, drinking a ton, peeing a lot, losing weight, all that stuff and, but now he's actually on ozempic and and on insulin. So he's on both,

Scott Benner 4:52
okay, like, did you find yourself saying to him, Hey, man, you seem like you have diabetes. And he's like, or, how did that go? I. Didn't

Lauren 5:00
go great. He wouldn't let me perk his finger. He was like, give me a month. I'm going to diet and exercise. I'm going to I'm going to lose some weight. My sugar will be good after that. And I was like, Well, unfortunately, you cannot diet this away or or workout to like, you know, this is something that I think that you that you have anyway. So I didn't let him come to my house. And my house is kind of like the gathering house, where everyone comes this is like, you know, all the family dinners, gatherings, all that stuff. So I was like, You're not coming over until I can prick your finger. He couldn't get away from it because my kids birthdays came up, and they're actually 24 hours apart, so we were celebrating them together, and I said, Matt in the room, let's go perk your finger. Anyways, team. Yeah, it was about a month. He didn't come to my house, though, because he really didn't want to perk his finger. You're his big sister, I guess. No, I'm not really sister. There's, there's three of us, yeah, just

Scott Benner 5:53
pushed him around. Also, it seems like you, I don't know another word here, but it seems like you get horny every eight years the exact same time is that? What happens

Lauren 6:04
exactly? Yeah, that's the only time eight years like, did

Scott Benner 6:07
your husband hear a bell go off in the room? You were like, oh, it's time again. Your kids are 24 hours apart. I know

Lauren 6:15
it's not crazy. It's crazy eight years with their age at and then 24 hours apart. It's wild.

Scott Benner 6:21
Same, yeah, okay, yeah, all right, so you're okay. It's weird to, like, pivot from your sex life back to when you were 13. But what am I gonna do you were 13 when you were diagnosed. You remember how it presented for you? Yeah,

Lauren 6:33
I do, for sure. Yeah, that was around Easter. Yeah. I actually was in a production for Easter at my church. And so we had, we had, you know, like, our costumes kind of before, like, a couple months or two before this, and I had, like, put my costume on for it. And I was like, oh, like, this is great. I'm losing weight. Like, I felt great about myself. And then that Sunday, yeah, my my grandmother was like, Yeah, I think we should prick her finger. I was peeing the bed. We had gone out for supper the night before. And I don't know if you've ever heard of Shirley Temple. Do you know what that is? Is

Scott Benner 7:05
it ginger ale and cherry juice?

Lauren 7:07
Like, Sprite and cherry Yeah, and so I think I, like, hammered, like, three of those the night before, out at dinner, just like, pounded back every like, pop all the time. I was just so thirsty, right? Anyways, yeah, we had, they went around the room, actually, before we had dinner on that Sunday, and, like, pricked everyone else's finger, dude. I was nervous, and everyone else was normal. And then they got, they got to me, and my sugar was 30. 32.4

Scott Benner 7:34
that's over. Is that around 700 Yeah, is that, honestly, I have my thing here. 576, wow. Jeez,

Lauren 7:43
yeah. So it was about a month, I think, before we caught it, is what my grandmother tells me. But yeah, she told me that we just, like, went back home, got some stuff, and went up to the emergency room. Leading up to this, I had been asking her some questions, just because it was a long time ago and and I was young, and she told me that I had, like, lost my vision. Wow, that's crazy. She just said I just looked really sick and stuff. And I was, I was hospitalized for about a week. I was in there, and yeah, and

Scott Benner 8:11
she had a meter because your grandfather had type one, yeah, exactly. Yeah, okay, yeah, Wow, geez. And you were drinking, like a real Canadian, like, pounding back those Shirley Temples. They probably just thought, like, at first, they were probably like, Oh, she is Canadian. But no, you were just thirsty because you were dying. Okay. Oh yeah.

Lauren 8:28
And I do remember too, like, sitting I would have been brought, yeah, like, grade eight, and I remember sitting in class and like, the teacher wouldn't let me go pee at times and like, and I would remember just being in so much pain, being like, I have to pee. And there's like, ears streaming to my face, and I'm like, I have to pee now. And like, she just wouldn't let me go because it was during class. And one I just, like, had to get up. I was like, I had, like, I'm in so much pain. I gotta get up. I gotta go to the bathroom. Is this

Scott Benner 8:55
where you are? We had to manipulate your brother, maybe from that teacher, yeah, yeah. I'll just force you into it. It'll be fine. I'll just force you Yeah, for sure. So 20 some years ago, Canada, definitely regular and mph, right? Yeah, I had to roll by you doing the cloudy, clear whole thing, right? Yes,

Lauren 9:15
okay, yeah, yeah. And I took like, I use, I didn't go on pens until about a month after, I was just used using, like, the syringe to, obviously, draw it up and inject it.

Scott Benner 9:26
You moved to a pen that quickly. Yeah, about a month after, okay, and then my grandmother was really pushing, oh, she was helping you. Oh, yeah, yeah, yeah. Does your province have what you would call more up to date diabetes care, or is it one of the ones that doesn't because it varies pretty greatly across 2025 is almost two months old. How are you doing with your resolution? Are you drinking ag one every day? Most resolutions are hard to maintain, but I find that drinking ag one is one of the easiest things that I can do for my health. My morning ritual that includes ag one gives me nutritional supplements that support my immune system and my entire day. I find that AG one is perfect for supporting my health and longevity goals, and it's easy to drink because it tastes good. This episode of the podcast is sponsored by ag one, so this year, try ag one for yourself. It's a perfect time to start a new healthy habit, and that's why I've been partnering with ag one for so long. Ag one is offering new subscribers a free $76 gift. When you sign up, you'll get a welcome kit, a bottle of d3, k2, and five free travel packs in your first box. So make sure to check out drink ag one.com/juice box to get this offer that's drink AG, one.com/juice box, the Dexcom g7 is sponsoring this episode of The Juicebox Podcast, and it features a lightning fast 30 minute warm up time that's right from the time you put on the Dexcom g7 till the time you're Getting readings, 30 minutes. That's pretty great. It also has a 12 hour grace period, so you can swap your sensor when it's convenient for you. All that on top of it being small, accurate, incredibly wearable and light these things, in my opinion, make the Dexcom g7 a no brainer. The Dexcom g7 comes with way more than just this, up to 10 people can follow you. You can use it with type one, type two, or gestational diabetes. It's covered by all sorts of insurances. And this might be the best part. It might be the best part alerts and alarms that are customizable, so that you can be alerted at the levels that make sense to you. Dexcom.com/juicebox, links, in the show notes, links at Juicebox podcast.com, to Dexcom and all the sponsors. When you use my links, you're supporting the production of the podcast and helping to keep it free and plentiful. Today's episode of The Juicebox Podcast is sponsored by Omnipod. And before I tell you about Omnipod, the device, I'd like to tell you about Omnipod, the company. I approached Omnipod in 2015 and asked them to buy an ad on a podcast that I hadn't even begun to make yet because the podcast didn't have any listeners, all I could promise them was that I was going to try to help people living with type one diabetes, and that was enough for Omnipod. They bought their first ad, and I used that money to support myself while I was growing the Juicebox Podcast. You might even say that Omnipod is the firm foundation of the Juicebox Podcast, and it's actually the firm foundation of how my daughter manages her type one diabetes every day. Omnipod.com/juicebox whether you want the Omnipod five or the Omnipod dash, using my link, let's Omnipod know what a good decision they made in 2015 and continue to make to this day. Omnipod is easy to use, easy to fill, easy to wear, and I know that because my daughter has been wearing one every day since she was four years old, and she will be 20 this year, there is not enough time in an ad for me to tell you everything that I know about Omnipod, but please take a look omnipod.com/juicebox I think Omnipod could be a good friend to you, just like it has been to my daughter and my family.

Lauren 13:27
Well, I'm in New Brunswick. I don't have too much to say,

Scott Benner 13:32
too much good to say, or too much bad to say. I don't

Lauren 13:36
have too much good to say, Okay, I don't know. I don't know what other places are like, I mean, here, right now, currently, I would say I have great support with the diabetes clinic here. My endo currently is in a different city, about an hour away here where I am. I actually have no idea I've been on the wait list here for since I had my daughter in 2020 but my brother actually just got into the endo here, and I was like, I've been waiting four years.

Scott Benner 14:07
Wait. You're on a wait list to see an endo for four years. Explain that to me like you haven't seen a doctor in four years, or you're trying to switch. Well,

Lauren 14:15
just after you turn 18 here, you kind of just like you move on from the pediatrics, and then you're kind of on your own. I didn't really follow it too closely, like, I took care of myself, but I didn't really follow up with doctors a lot, like, until I was pregnant when I was 21 and then, even then after that, I didn't really follow so the end, no, that was here had passed away. So then they had to shift everyone around. And then I just got a hold of someone, yeah, referred from Yeah. I guess you know what the the first referral did take two years to get into him, and then we kind of drifted apart in 2020. Didn't really see him or talk to him. And I actually just reached back out this past July. I just, I thought I was having some thyroid issues on the go. And anyways, yeah, so I mean, if I have to see him, I guess I can call him, but

Scott Benner 15:14
I wait, tell me. Tell me just about that you thought you were having a thyroid issue. You reached out to the doctor. They get back to you and you get an appointment. Or how long does that take? For example,

Lauren 15:24
it was just over the phone, and I think I only had to wait two or three weeks for his phone call.

Scott Benner 15:29
So you called them three weeks later. He calls back. Do you go get a blood test? Or what happens?

Lauren 15:35
Yep, he he said, in about a week. Yeah, hospital called. I went in for blood work and had the results back, I'd say, Yeah, within like, a week, week and a half.

Scott Benner 15:44
Okay, so this whole process from phone call to blood test results is four or five weeks. Yep, I just want to say for Americans that find themselves complaining about health care systems, if I called my doctor today and said, Hey, I think I'm having trouble with my thyroid, would you mind if I got a blood test, he'd go, that's fine. And then he'd write me a script, email it to me, I'd drive up the street, get my blood drawn, and I'd have the results tomorrow morning.

Lauren 16:09
Oh, yeah, okay, so it's not the best here. Then, no,

Scott Benner 16:13
no, no. I mean, if you're waiting five weeks for blood test results, that's not gold standard. And I don't think what we're doing here is gold standard, don't get me wrong, but, but there's a lot of time built into that. And if you're, you know, it's tough, because if your symptoms are something that they're like, Oh, you'll be fine, but you really won't be. It's, I don't know. I just hear a lot of stories, yeah, no, yeah, from your big frozen ice shelf, and it sounds like it's not great, yeah,

Lauren 16:36
no, no, should we move? Maybe we should move.

Scott Benner 16:41
I don't know. You're pretty Canadian. I think if you went somewhere else, they'd know and kick you out immediately. Don't you think it's

Lauren 16:46
funny? Yeah, no, they, they definitely know that I'm Canadian, for sure, I get that if

Scott Benner 16:50
I travel. Oh, I'm hoping you do something during this hour that you feel like you want to apologize for, because you apologized to me before we before we started recording, and your story was so sorry. It was just lovely. I can't wait for that to come out. Tell me why you just started pumping last year. Insulin pumping.

Lauren 17:08
Oh, yes. Okay, so I started pumping in well, it would have been two years in the in February 2025, will be two years. Okay,

Scott Benner 17:18
Lauren, can I stopped you for a second. Yeah, you're so lovely. It doesn't matter how long ago it was recently, right? Just did that thing that my uncle used to do. You'd be like, Oh, we went for a ride. It was a 1958 four, wait a minute. No, it was a 50 set. Was it a Ford or ish? You know? I think it was a 1954 Dodge pickup truck. And then you listen to his whole story. It's got nothing to do with the truck. I mean,

Lauren 17:47
that was great. I love a timeline. A timeline is always great.

Scott Benner 17:50
But more recently, you started pumping. I'm wondering how you like was that on purpose? 20 years not pumping? Right?

Lauren 17:57
Yeah, it was about 2020. Years. Um, so, yeah, I just things changed drastically. After had my daughter, my insulin needs, like, doubled, and I just, I couldn't, I don't know, it just it got to the point that I was, like, hovering in the 20s all the time. And like, that's not normal for me. I live like, you know, healthy lifestyles, like, why is it always around, like, 15 to 20? I could barely get it, like I was taking more insulin. And I was like, All right, you know, I think I've had about a year of, like, a diabetes burnout, you know, I didn't care. And actually, what's funny is, when I got set up with the pump, she, you know, she explains it all to you, and then she goes, You got to Pre Bolus your meals. And I was like, what's that mean? I had no idea. So if for 20 years of having diabetes, I never Pre Bolus my entire life, because no one ever told me to do that.

Scott Benner 18:53
Okay, so you were on, you were using pens like for for 20 years, and then something happens after you have your second kid, your insulin needs go up. Did you gain weight? Did you? No,

Lauren 19:03
I actually only gained weight this past year, and that's what had led me to get my thyroid checked out. I

Scott Benner 19:09
see okay and your thyroid was okay, or what was your TSH, when they looked

Lauren 19:14
my TSH, I had it right here. I like

Scott Benner 19:18
that you're prepared, but not so prepared that you know where it is,

Lauren 19:21
I know. Well, it's all online now, which is nice, thyroid, okay, right here. No, that's t Well, my TSH was, like, one point something, but they did take, like, I'm obviously not that prepared whereas, but

Scott Benner 19:35
they didn't end up giving you any medication, right? No, they didn't. No, I mean, your TSH is good.

Speaker 1 19:41
It is good, but my t3 was low. Okay. Did

Scott Benner 19:45
they give you? Did they give you cytome?

Lauren 19:47
I haven't talked to the endo since I got that test done. How long ago

Scott Benner 19:51
did you get the test back? July? Is it you haven't talked to them because you haven't called back or because you're waiting for them? Yeah. I

Lauren 20:00
guess. I mean, I didn't call back my family doctor said that it was fine, okay,

Scott Benner 20:04
yeah. I mean, it seems like it that might not be your issue, right? But you're having more insulin resistance and you're Are you having other symptoms, other like, things that you see, like, what made you think thyroid,

Lauren 20:19
yeah, I was extremely tired, falling asleep behind the wheel. Just no energy. The weight gain. I was having really bad acne, even I felt like there was just something going on. So I actually had reached out to a naturopath, and I've been working with him for a while.

Scott Benner 20:39
Okay, are you looking at, like, hormonal stuff, like, more PCOS related?

Lauren 20:45
Yeah. Well, no, that she didn't test me for PC PCOS. I just came off birth control a year ago, and so I Yeah. So there was, I think that messed with my hormones a bit. So my t3 three or whatnot is 3.4 Yeah. And then the teas TSH, was like, 1.07

Scott Benner 21:06
you came off birth control. Has it been eight years again? Are you ready? It's time to get, like, a notification. You're like, Oh, I gotta make another baby. Oh,

Lauren 21:17
my God, she's 34 I don't know. I didn't get, I don't want to do that again. I had to. I started fresh again already, like, I was just out, I was almost free. And then I was like, Okay, let's have a baby. It

Scott Benner 21:30
was almost free. Yeah, I was your management move, like, through pens. Like, what was your a 1c through those 20 years,

Lauren 21:37
I had just reached out to the hospital here to get all of my history since 2003 and it's literally coming in the mail tomorrow, so it didn't come in on time. But I had looked back through the history online a little bit, not, not a ton, but I noticed some of my a, one, Cs were into the sevens, like seven, 7.2 7.5 my highest that put me on a got me onto the pump. When my doctor called and told me it was 7.8 and that was, like, one of the highest I've had in a long time.

Scott Benner 22:08
Yeah, it just does really sound like your insulin needs went up significantly. Yeah, exactly.

Lauren 22:12
But my a, one, CS before, like, uh, before 2019, they were good. Like, they were like, five point Sometimes there was 5.5 5.9 Yeah,

Scott Benner 22:24
they were great. Were you wearing a CGM during that time at all?

Lauren 22:28
Nope, I didn't get a CGM until 2019 Okay,

Scott Benner 22:30
so you don't know about your variability if you were, like, staying steady or anything like that.

Lauren 22:35
No, I can really tell, like I am good at guessing, like if I didn't have a CGM on and and someone was like, What's your blood sugar? Right? Now, I could probably pretty much pinpoint it.

Scott Benner 22:45
Oh, Lauren, I don't think that's a thing, but because then what would you need the CGM for?

Lauren 22:50
No, I just mean, based on feelings, right? Like, if I'm like, okay, like, you know you can, you can start feeling your highs and lows, and I can catch

Scott Benner 22:59
it. Oh, so if you're dizzy or foggy, you know that?

Unknown Speaker 23:04
Well, yes, but I can, I

Lauren 23:06
feel the low quite early, around, like a 4.9 even, like, I'll start getting a little symptom. Okay, you know. Okay, so

Scott Benner 23:13
you feel your symptoms. Oh, yeah, okay, all right, barn, you see what I'm saying, though, right? Like, like, I couldn't, I couldn't say to you, like, if your blood sugar was, like, 5.3 I couldn't say to you, what's your blood sugar right now? If it wasn't falling you'd have no idea. You'd just be like, Well, I'm not,

Unknown Speaker 23:26
yeah, I

Lauren 23:28
could just, like, take a rough guess. But, I mean, I just mean, like, a lot of times like, I can, I can kind of feel where I'm at. If I didn't, yeah, yeah, I wouldn't know direction and stuff like that. No,

Scott Benner 23:38
of course. But that would be amazing, wouldn't it? Yeah. I mean, it would be great. I'm just pointing it out for people who are listening, whose kids are, like, I don't need a CGM. I can feel my blood. You don't know if you're vacillating. You don't know like, you can feel yourself falling at lower numbers. And you know when you're higher, because what do you feel nauseous or is or how do you feel when you're higher?

Lauren 23:56
Oh, just a bitch.

Unknown Speaker 24:01
Oh, yeah, yes. I

Scott Benner 24:05
wasn't sure if you were saying that your blood sugar was a bitch or you were. I couldn't.

Lauren 24:10
I mean, both. I can get quite bitchy when it gets high, for sure, yep,

Scott Benner 24:14
okay. But in between, in between, bitchy and dizzy, you're not really sure what's going on. Okay, all right, right,

Lauren 24:19
yeah, yeah. I'm like, okay, yeah, see what it is, yeah,

Scott Benner 24:23
what CGM are you wearing now? I mean, you're in Canada, Dexcom, g6

Lauren 24:30
Yeah. G6 and tandem,

Scott Benner 24:32
okay. Are you using control IQ, like the T slim, yep. How do you like

Lauren 24:36
that? I love it, yeah,

Scott Benner 24:39
cool. Yeah. It's great. I'm looking at your list of things you wrote down here. You said you're self diagnosed. ADHD,

Lauren 24:46
oh, my goodness, probably yes. I just don't want to get diagnosed. It costs too much money.

Scott Benner 24:50
Well, it also takes nine months for you to see the doctor. But that's neither here nor there. What makes you think you have? ADHD, well,

Lauren 24:57
probably the hyper. Part of it, I cut people off a lot, like, I'll get this thought my head, and then I'm like, you know, if you're talking to me, and I'm trying really hard, really hard while you're talking to not cut you off and tell you, like, okay, speak, what's in my head right now? And I just, yeah, I don't know. I never sit down super hyper active person. Like, I need a job. I run a house cleaning business here, I that job is perfect for me, because I'm constantly going eight hours a day, non stop, and then I come home and I just continue doing things, and I just sit when I go to bed,

Scott Benner 25:34
you're like a robot. It's just like, stop.

Lauren 25:38
Well, yeah, exactly. And I go right to

Scott Benner 25:40
sleep. Okay, well, and that's what threw you off about being tired during the day too. That was very uncharacteristic for you.

Lauren 25:47
Exactly, yeah, yeah. So I just thought, yeah, things were off. But I had done a food sensitivity test about two months ago, cut out some foods, and my energy levels have have been totally back to normal and not falling asleep behind the wheel at like, you know, four o'clock in the afternoon, and I just feel so much better.

Scott Benner 26:07
That's interesting. So what did you find out that you had a sensitivity to eggs? And

Lauren 26:11
I think that's probably common for a lot of people, eggs like wheat, like gluten. So I would actually like to get tested for celiac. My grandmother had celiac, and I just noticed now, if I do eat like a bread or whatnot, my stomach will hurt right away, pretty instant. So, I mean, I eat a pretty low carb diet anyway, so I don't eat a lot of bread, but if I was, you know, to have a sweet treat, it would hurt right away.

Scott Benner 26:39
Okay,

Unknown Speaker 26:40
yeah. Oh, and, and dairy, the

Scott Benner 26:43
bread definitely hits you, though. And dairy too. No, yes,

Lauren 26:46
I live in a bubble. I can't eat anything but apples. I guess.

I don't know it's, yeah,

I just, I just picked something. But no, yeah, like, I mean, it's definitely helped a lot. And,

Scott Benner 27:00
yeah, yeah, okay. Well, I'm glad you figured something out. And you went to a shaman. You said, or would you say,

Lauren 27:06
yes, yeah, yeah, yeah. Just you found

Scott Benner 27:10
an igloo in the middle of nowhere and walked in and said, I get tired. And they, they ran with some smoke around you on some leaves, and you were they said, stop eating wheat. About it, yeah, yeah, yeah,

Lauren 27:21
yes. That's exactly how it went. And he said, here's a couple of supplements, and we'll send you on your way. And yep,

Scott Benner 27:27
how close is the next nearest Home to Yours? Like, in in kilometers? Well,

Lauren 27:31
I am outside of city limits. We're in the country. Life of it, I guess, yeah, like you're pretty I see just tree. I see trees right

Scott Benner 27:39
now. I gotcha. Yep. And bears. Do you see bears? We definitely

Lauren 27:44
do. Yeah, we get bears here trying to take our garbage can. Often, he just marches over. He'll open up the garbage can and go in, take the bag out, take it across the street.

Scott Benner 27:54
Why not sit there and use it right there? Yeah, we see it all over here. That's interesting. I have more questions, but you do jump around like I was interviewing somebody the other day for something not that's not the show. And I said it's so interesting. Sometimes you ask people a question and they answer you. And sometimes you ask people a question and they sing song, they start talking, then they stop, and then they go in a different direction. It almost feels like they're swinging back and forth. And when they're done, you kind of have their answer and like you do, like in conversational you understand what they're talking about. But it's not as easy as, Hey Lauren, what's your favorite color? Oh, Scott, I love blue, because I think it makes me feel calm, like it's like, Hey Lauren, what's your favorite color? And you go, I have a bedroom, and we once painted it green, and I did not like the way it was. And I went through a lot of different colors, and eventually I landed on blue. And it turns out I really like blue, like, you know, I mean, like, it's and that was even pretty direct for how some people speak, and so it's interesting, it's fun, it's just different. Like, it is tiring though, like, I feel like I'm working a little bit. Oh, yeah, yeah, right. Because usually I don't feel like I'm working when I do this. I just feel like I'm chatting, but I'm so sorry. Finally, say it again. What are you? You're What are you? Stop laughing. Really,

Lauren 29:15
I'm so sorry. I didn't I don't want you to be working. I

Scott Benner 29:19
just wanted you to feel sorry. That's all. No, no, I'm fine. Don't worry about it. Please explain to me Your husband is obsessed with me.

Lauren 29:29
Oh, my goodness, he, yes, he listens to every single podcast. He loves this so much, like, if he, if anything, he's probably like, jealous that he's at work and I'm sitting here talking to you. He wishes he's he was here.

Scott Benner 29:44
Why does he trying to learn about diabetes to help you? Yes,

Lauren 29:48
yes, but he also wants to know about it because he's scared that our daughter is going to get it. Oh, okay, so he wants to know as much about it.

Scott Benner 29:58
Well, he's a good dad. Yeah.

Lauren 30:00
Yeah, what a great dad. Yeah, he can be quite annoying sometimes, though, when he's telling me my sugar is high, when I already know it's high, or if I want another bite of a cupcake, it's, you know,

Scott Benner 30:11
it's annoying when my husband loves me, I don't like it.

Lauren 30:17
Stop Loving me so much.

Scott Benner 30:18
What do you care about my health? Shut up. How does it go? Like, if your blood sugar is like, is he following you on a CGM, for example? Yes, he follows me. Okay. And so look at you. You got so serious. So, okay. So, yes, I don't love it. So, so is he texting you the first time you like, where's your high alarm. High

Lauren 30:40
alarm would be around 11 to 12, okay,

Scott Benner 30:46
and if it goes off, also, I'd like to see that high alarm come down a little bit, if I could. Is there a reason we couldn't have it go off more like an eight maybe?

Lauren 30:56
Well, sure, they had it set on my when I first got set up with the pump at like, 14,

Scott Benner 31:01
yeah. And he's like, that's not very valuable, knowing once you're what is that 14 is over 300 or 250 So, yeah, exactly. So I like that. You brought it down. Bring it down more. My point here is it beeps once. He texts you right away, or he texts you after it's beeped at him five times. Like, you know what I mean? Like, when do you hear from him?

Lauren 31:19
Uh, he does not text me when my sugar is high, because that's, that's when I turn into a bitch, remember? And he, I don't want him to do that, but he will contact me if my sugar is low,

okay, for how long? Uh, he'll probably get like, two beeps and then be like, Okay, I should make sure she's alive. And you don't like that. No, that's

fine. That's fine. Yep, I'm okay with that.

Scott Benner 31:43
Look too. You're like, people are listening. I want to sound reasonable, but it's okay. Are you normally handling it when he texts you? Yes,

Lauren 31:52
yeah, yeah. There was one time recently, though I did send him by location. I sent him the location, and he started getting the beeps. And then he called, and I was like, I don't, yeah, I don't know what was happening. So I was just just hammering those Dex tablets into me. Yeah, it finally went back up. But yeah, it was like, straight arrow down at like, two point 2.1 or something. Did

Scott Benner 32:14
you text him your location because you thought, like, well, they'll be able to find my body later. Is that what you were doing? Yes, exactly, yeah. I don't want the kids to wonder if I was eaten by a bear, so let me just let everybody know where they'll find my corpse. What happened that you were falling so fast? Do you think

Lauren 32:32
I don't know. I think I might have just were my job so active, I think I had taken a correction and I didn't need to.

Scott Benner 32:40
Okay? And then you kept working, and you dropped really quickly, okay, yeah. And you just, you just went with, like, dextrose tablets or something like that to get you back up.

Lauren 32:49
Yeah. I mean, those were pretty quick for me, like I could be, you know, 2.4 and I take one tablet, and then it's, it starts, like, going back up.

Scott Benner 32:56
Those are your go to, yeah, you carry other stuff with you. Nope, no, just those tablets. You don't have like, couple juice boxes in your car door or, like, anything like that.

Lauren 33:06
No, I get that. I don't know if you've heard of this, but, like, I don't like eating a lot when my sugar is low and I get that, like, rocky feeling in my gut, like I don't feel good, so I feel like I don't want to get sick. There's been times where I have eaten because my sugar was really low, and then I get really nauseous, and then that gives me a little bit of anxiety. So if I just stick to the tablet, wait the you know, 10 minutes and I'm good to

Scott Benner 33:37
go. You're worried you'll vomit, and then you'll be in a worse position. Oh, definitely,

Lauren 33:40
yes. I have a big fear of puking. Gotcha

Scott Benner 33:43
a big fear of puking? Oh yes. I want to get back to just for a second me. But your husband, like, enjoys the podcast outside of it being about diabetes,

Lauren 33:55
or Yeah, he does. Oh yeah. He's, he's Yeah. He laughs all the time. He loves him. Oh, I'm

Scott Benner 34:00
glad this is awesome. Oh, yeah. I got a great review the other day that somebody said, By the way, whoever wrote this, thank you made my day. Said that listening to this podcast ruined other podcasts for them, because they realized how bad other hosts were at their job, and it made me feel good. Yeah, it's true. Thank you. I appreciate that very much. You're afraid of insulin? Is that true? Uh, probably

Lauren 34:22
a year ago, yeah, I was like, if I have five, six units of insulin on board, that's a lot for me. So I like, I just don't have a lot of insulin on board. Usually,

Scott Benner 34:34
okay. And did that have something to do? Do you think with when your insulin needs went up. Your blood sugars were higher. Is it because you were afraid to give yourself more?

Lauren 34:44
Yes, because I wasn't used to it, right? So

Scott Benner 34:46
then the then the big question here seems to be, your brother got given insulin and ozempic right away for being type one. Well,

Lauren 34:54
actually, no, sorry, they gave him. We go V with no insulin, and it was during. During Thanksgiving last year, right? And he was here on the weekend, and I said, Do you want to eat food? And he was like, Yeah. And I said, Well, you're gonna have to take some my insulin. Like, his sugar was 19, and he wanted to eat food. And I said, Okay, take a couple doses of insulin. Like, I it's not gonna You're fine. Yeah, you're fine. Let

Scott Benner 35:16
me pick through this for a second. So is he or was he overweight? Yeah.

Lauren 35:21
I mean, he's a bigger guy. This is interesting. I wouldn't say

Scott Benner 35:26
he's huge. How much? How tall is he? I wish

Lauren 35:28
he was here. He left six point or six two.

Scott Benner 35:32
He's about, he's over six feet tall. And what do you think he

Unknown Speaker 35:36
weighs? Oh, he's about 252,

Unknown Speaker 35:40
42 Yeah,

Scott Benner 35:41
pounds, yeah, right, okay. And, I mean, that's, yeah, I don't think you're supposed to. I mean, is he? I don't know how to say this. This is weird. We're talking about another person, but I have a reason for asking it, like, is he? Does he have fat collections, his stomach, his back is I mean, do you look at him? He's

Lauren 35:58
got a weird body. He's got a big, broad shoulders, like big upper body and very small low body, and then carries the weight stomach, I would say, like

Scott Benner 36:06
blue dough from the Popeye, definitely. Yeah. Okay, boy, there's one. Yeah. I was interviewing a guy the other day. He goes, I don't get a lot of your references, man. I was like, sorry, you'll figure it out. I wish this was more about him. So we could call this episode weird body, because that was really interesting, what you just said. But okay, so he's so there's weight to lose. So at some point, someone thought he had type two diabetes and gave him week. OV, is that what happened?

Lauren 36:31
Yeah, when he went into the hospital, they he left the hospital with nothing, but basically blood work and to contact his doctor on Monday, okay? And then he did, and she gave him, we'll go V and no insulin. And then, yeah, it was that weekend. And I said, Well, you need to take couple doses of insulin. And then his doctor wouldn't give him the insulin because she was like, You're not type one. And I said, Well, screw her, you are. And then, yeah. So then I said, you go to the doctor the next day, tell her that you took my insulin, and she'll write you a prescription for insulin. So she was livid that Matt took some of my insulin, okay, and she was so mad about it. But

Scott Benner 37:16
did she give him a script for insulin? Yes, that day, okay, you are good at pushing people into doing things.

Lauren 37:22
Oh yes, yes, yes,

Scott Benner 37:25
I need something. I'm calling you. Yeah, yes, definitely give me a call. Yeah, Lauren will take care of it. Oh yeah, she'll get it done well. So, okay, so, but, but the doctor left him on the we go, V, so she must have thought he had wait to lose

Lauren 37:40
Yep, okay. Yeah. I think he was about 230 when he got diagnosed, and then when he got put on the insulin, he did gain, gain about 20 pounds.

Scott Benner 37:47
Okay, so he went up to 250 Has he lost weight since then? Do you think he's

Lauren 37:50
been on and off of ozempic for the past few months? So

Scott Benner 37:54
I don't know. I wonder why he stops taking it to eat.

Lauren 37:58
It's not covered, and they won't give it to him, like covered through insurance, unless his a one sees over seven,

Scott Benner 38:04
they're making him pay for it with his loonies. Yes, oh my god. How many loonies is it to a septic? Gotta be a lot.

Lauren 38:12
I believe it's around 232 50 a month. Yeah.

Scott Benner 38:15
So he's taking it when he can afford it. So he must notice it's helping him, or he wouldn't go back to paying for it again. I would imagine it's

Lauren 38:22
crazy, like I track him on my phone, and when he is not on ozempic, he roller coasters all day, up and down, up and down. And then since when I can tell when he takes the ozempic and he's straight line, pretty flat

Scott Benner 38:36
all day. Yeah, it works like that for Arden too. I have to admit, she doesn't use oil. I tried to get it, yeah, I was gonna say, Arden doesn't use ozempic. She uses Manjaro, Manjaro. I don't know how to say it, but, like, whatever, it's a stark difference, I have to say, especially when she's eating that crappy college food, like, if she was home eating here and on one Jaro, oh my gosh, her blood sugar would be nearly perfect. It would probably just be like a straight line around 80 or 90, most of the time, with like a blip to 140 if she ate right. It's crazy how well it works at that. I mean, you eat less too, obviously, but it just the way it slows your digestion down. Really changes things, by the way. This is why I brought all this up, because I was going to ask you if you were thinking of trying to get it as well, because I figured your doctor was prescribed it to your brother. They'd prescribe it to you, and I figured it was covered by healthcare. But so you asked about it, and what happened? Well,

Lauren 39:34
we don't have the same doctor, but yeah, I did ask about it. She wanted me to go to my Endo, so I didn't ask my Endo. First I asked my family doctor, and then she said, yeah, go to the end. Oh, so I haven't reached out to him, but she thinks that I wouldn't get approved for it, because, like, I guess I could get the prescription and take it and pay out of pocket, like he's doing. Doing, but to get it covered

through our health care. So I wouldn't qualify

for it, because my a 1c is not high enough, and I'm not overweight,

Scott Benner 40:09
so you're not overweight, but you have but you do think you have insulin resistance, and right it, boy, it would probably really help you, too.

I know, yeah, it's

Lauren 40:21
interesting. Maybe I should just be really shitty for a couple months and get

Scott Benner 40:24
the a 1c up. Oh no, no, no, Lauren, let's not do that. But, I mean, I don't think it's covered for type ones. No matter what your a 1c is it isn't here? Is it there in the Canadia? Like, hold on a second. I don't know how to figure that out. I mean, how would we figure that out?

Lauren 40:45
I what I keep hearing around here is that it depends on your insurance, and I think it's a little

Scott Benner 40:51
bit of a fight. Maybe it's worth having the fight I'm seeing. I'm seeing, if the internet knows about Canada and glps. GLP primarily approved for type twos and weight management, but they are not officially indicated for type one. I know that that said they're sometimes used off label. I know this too covered for GLP. Medications that are Canada's Health Care System can be varied depending on the province and individual health plans. In some cases, these drugs may be covered for people with cardiovascular issues or obesity. I would wonder if you went to the doctor and said, Hey, like, Look, I've had this massive increase in insulin resistance. If I was type two and my insulin resistance went up like this, you'd give me this GLP in two seconds. Like, is there a way around this? So can we look into it? That'd be my my question.

Lauren 41:36
Yeah, she did seem to have an issue prescribing logovi For me, because she was like, I can give you this as a weight loss drug, but I'm not sure

Scott Benner 41:44
you didn't have weight to lose, but you you qualified for that? Well,

Lauren 41:48
I could, because I had told her I had gained some weight. I did recently lose some of that just on my own, but for a while it was kind of just hovering there, and I, you know, couldn't get it, you know, couldn't get rid of it. And then so I Ted spoke to her and told her this, and she was like, well, I could give you, we go V for a weight loss, but I can't, for some reason, give you ozempic For Type one. I don't

Scott Benner 42:13
know, we go via and ozempic are the same drug. So why did you stop the wegov then?

Lauren 42:17
Well, she should. We kind of stopped the conversation there, and she wants me to go to the

Scott Benner 42:21
end though, oh, I would just ask for the we go via Fauci. She's just a phone call away. Yeah, you guys have all kinds of technology and kind of, from what I understand, yeah, yeah, we've got lots, yeah. Do you have first strike capability? Any nukes over there? I don't know about you guys. Are you able to do that?

Lauren 42:41
I don't even know. I mean, I know that we have a base next to us. I'm not sure what they have over there, just

Scott Benner 42:47
a bunch of Mounties, maybe. Yeah, horses and red coats. But, you know, it's funny. I never thought about that. Let's find out real quick. Does Canada

Unknown Speaker 42:59
Dukes just check in here.

Scott Benner 43:03
I've never, Oh, you do not possess nuclear weapons.

Lauren 43:07
Good for you. We're safe over here. Yeah, oh, yeah, okay.

Scott Benner 43:10
I was just, I didn't know if I needed to be worried or not. No,

Lauren 43:13
no, don't be worried. And you know what? This is, um, off topic, but I tried to watch this movie that you talked about for Canadians to watch before I came on here, and I just lost track of time. And I can't remember the name of it, but I was like, tell my husband I should watch that before we

Unknown Speaker 43:29
stream. Yeah,

Scott Benner 43:31
my God, I can't I mean, it's like one movie you guys made, and nobody's watching it.

Lauren 43:36
I got too into love is blind, and then I forgot to watch it. Love

Scott Benner 43:40
is blind. Which one's that on Netflix? Oh, oh, is it? What is it about? My God, it's in season seven.

Lauren 43:48
You're right. Yeah,

you should watch it. It's super good. Oh, they

Scott Benner 43:53
get first of all, there's no chance I'm gonna watch that, just so, you know. But like, this is the one where they get married, right?

Lauren 44:00
Yes. Oh, yes, I love reality

Scott Benner 44:03
TV. Oh, what a bunch of nut next. Oh, so they Okay, so they get on, like a reality TV show, and then they marry each other, like, after knowing each other for how long? Oh, my word, a month, maybe. Oh, what a plan.

Lauren 44:15
Yeah, I know. I know. And there's actually still some couples together. Are there? Really?

Scott Benner 44:23
Oh my god, I'd love to meet those people, me too. I don't want to watch the show, but I'd love to, I'd love to meet the people who got married on a reality show and are still married. Well, listen, here's what I got here, Marissa and rams. This is this? Like is a spoiler if I say this?

Lauren 44:40
No, no. Last episode already aired this week. All right, well, they're

Scott Benner 44:45
broken up. They're brought Yes, they are Yeah, that's a good thing. Ashley and Tyler are married. Yes, Taylor and Garrett are married. This is ridiculous. Okay, I'm gonna stop now. It's making me upset. Okay. Oh,

Lauren 45:01
I'm surprised your daughter doesn't watch it. She's not in his shows like that. I

Scott Benner 45:05
don't know she's so busy at school, they don't. And she used to love Big Brother, but I don't, I don't think she loves that as much any longer, right? Yeah, I think that kind of wore out for I mean, I watched survivor back in the day, but I haven't seen it a long time.

Lauren 45:23
Same, yeah.

Scott Benner 45:25
Survivor is great because it just does. It's like, wow, this is actually how life goes. Like people, like, get together in groups, and then they attack other groups, and then once they've dominated the other group, they attack each other until one's left.

Lauren 45:38
Yeah, people, yeah, it's awesome, yeah, and that must be on Season 30. Like, that's been out for, I don't even know.

Scott Benner 45:45
Oh, my God, Jeff probs has had, like, many different face lifts. Yeah, it's been a while now. Yeah, yeah. Maybe he'll be our next president. I'm just kidding. You're

Unknown Speaker 45:58
gonna find out.

Scott Benner 46:00
Yeah, I think that qualifies him, yeah. Anyway. All right, so what else have we not talked about here? Let's see your list. Your grandfather passed from a massive heart attack. Was it obviously type one related?

Lauren 46:13
I mean, I think so. He was diagnosed early 20s and passed away at 80. I mean, back then, right? He was on one injection a day. He was always set in his ways. He never changed, never went to pens or anything. Your

Scott Benner 46:27
grandfather rode like regular an MPH for 60 years.

Lauren 46:30
He took one kind of insulin once

Scott Benner 46:33
a day. He's an OG baller, yeah. How long ago did he pass away? 2013, no kidding. How much longer did your grandmother live? Or is she still alive? She's still here. She's in her 90s.

Lauren 46:47
She'll be 90 next, next year. Damn, that's awesome. Yeah, that's my last grandparent. I had both my other set of grandparents just died recently, like a year ago. Nanny was the celiac, and she had type two diabetes, and my grandfather had a cancer, but he didn't, I don't even know. I don't, I don't know what. He just died. I don't, you guys,

Scott Benner 47:14
no, I don't. He just looked up and he went, that's enough. I

Lauren 47:17
was like, oh, okay, would he die up? I don't know, does

Scott Benner 47:21
your whole family live out in the trees? No offense, like in the woods? No,

Lauren 47:25
no, no. They they complain that I'm 20 minutes from them. Okay,

Scott Benner 47:29
so they're a little more suburban, yeah, and we lived in

Lauren 47:33
the city up until a couple years ago. Okay, we just had built a house out here.

Scott Benner 47:37
I got you, I understand. I mean, it sounds nice, don't get me wrong, except for the bear. But, I mean, what else is out there? It's great, yeah? Like a raccoon, so I imagine

Lauren 47:46
we have some raccoons for sure. Yeah, we it's pretty quiet. We have a lot of four wheelers that go by every

Scott Benner 47:52
day, though, any scary cats, like Bobcats or anything like that.

Lauren 47:55
No, like foxes will roam around here, bunnies, bunnies

Scott Benner 48:00
and foxes seem okay to me. Yeah, yeah. I have to say that one year, Fox had their babies in our backyard, and it was, like, it was like, the most lovely couple of months, like, watching these baby foxes just run around the backyard, then they just went off somewhere. So cute, yeah? But it was, it was really nice. I have a picture somewhere, wow, I'm not gonna share it with you, but, I mean, I have it. I don't know, I don't exactly know where it's at, but I have it. That's so cute. It was lovely. No, it was, it was really like, everyone was just like, enamored with little babies bouncing around out there. That was good. Yeah, no, I have to admit, I really did enjoy that. Were your parents older when they had you?

Lauren 48:38
No, they had me, I'd say 23

Scott Benner 48:44
Oh, okay, I don't know. My math got messed

Unknown Speaker 48:46
up somewhere. Yeah, they're they were born in 65

Scott Benner 48:49
okay, but your mom has Ms. Oh, yeah,

Lauren 48:52
sorry, yeah, I forgot. Yeah, she has MS. She does. She got diagnosed around 2012

Scott Benner 48:58
I think is, it is something that she struggled with her whole life, and finally got a diagnosis for something that came on her about 2012

Lauren 49:04
No, she got misdiagnosed so much for just like the like in dizzy spells, vertigo, stuff like that, fibromyalgia, all that. Yeah, it was like 10 years trying to figure

Scott Benner 49:17
out what it was. Oh, I'm sorry. What do they do for Yes, right

Lauren 49:21
now, she takes an injection once every three months. She used the walker. Yeah, so she and she just went back to work part time. She was off for a couple of years, and yeah, so she's out there working now. Okay,

Scott Benner 49:35
so she has an auto immune your grandfather is she, by the way, your grandfather's daughter or your grandmother's

Lauren 49:42
not the diabetic grandfather, that's my dad, okay,

Scott Benner 49:44
and so you have, your mom has an auto immune. Your grandfather had an auto immune. You do? Your brother does? Your grandmother has something type two, but not, yep, okay, oh, a celiac. Excuse me, so there's an auto. Room, yeah, celiac, that's a fair amount. Yeah, yeah. How about your husband? Now, does he have anything on his side of the family?

Lauren 50:06
Oh, sorry, I should say that my dad has Graves disease,

Scott Benner 50:10
autoimmune. Okay, okay, yeah, yeah,

Lauren 50:14
yeah, and yeah. So my husband, nothing is wrong with him and with his parents. There is, yeah, my father in law is a diabetic,

Scott Benner 50:25
type two, okay, but no auto immune, like celiac, thyroid, stuff like that. No.

Lauren 50:31
Heart runs on his side of the family. And I know that's not auto auto immune, but on both sides, actually, we've got, you know, some bad hearts,

Scott Benner 50:39
yeah, I mean, I don't your grandfather's heart's gotta be from type one. So were there other people on that side that had heart attacks?

Unknown Speaker 50:46
Yep, yeah, my dad

Lauren 50:48
had one, and my uncle had one. They both lived through them. Wow, jeez, yep, yep. And then my, my husband's dad had open heart surgery back in 2020, my

Scott Benner 50:59
God. And yeah, what are you guys eating? What's going on up there?

Lauren 51:03
Well, I mean, you know, I don't know what's going on. You know, I'm, you know, I'm cooking on stainless steel pans, trying to be healthy, and I'm glad,

Scott Benner 51:14
good for you. It's a good step. You're like, I don't know. I bought stainless steel pans. These mothers are still dying. I don't know.

Lauren 51:23
Sunshine don't burn candles, non toxic stuff, and everyone's still dying. I don't know, yeah, no,

Scott Benner 51:32
no, that's, it's, it's, it's, I mean, it's a lot, but, you know, you guys, I mean, but to have that issue and live to 80 is, is pretty awesome, actually, you know. So, I mean, that's terrific, but yeah, would you worry about your kids? Do you think about getting them tested?

Lauren 51:49
Oh, I worry about my daughter more than my son. It doesn't run on my son's dad's side of it. I do check the kids often, like my son will have around a 4.8 for his fasting. And then my daughter, oh, I just, I don't know. I can't stomach testing her sugar at the age that she's at. I just have the biggest fear with, like, I don't know, just she's a lot to handle. Okay,

Scott Benner 52:15
let's go slow. Let's start with, she's a lot to handle. What does that mean? She's

Lauren 52:19
a redhead, and she's so feisty, and so like, I have to sleep with her at night. She is so needy.

Scott Benner 52:29
And how old is she? She's four. Oh, she's Yeah, you mean you're sleeping with her because she needs so many things. You don't want to walk back and forth or what are you talking about?

Lauren 52:39
Oh, no, she will not let you leave the room. Like if you're not beside her, she'll wake up and come get you.

Scott Benner 52:47
How long has that been going on for? Since 2020, when she was born? No kidding, she's gonna have to hurry up. You're on a baby schedule. You almost have to have a baby again. You only have a few more years,

Lauren 52:57
yeah, three and a half, four years left. I gotta reproduce again.

Scott Benner 53:01
She better figure this out. Yeah, yeah. Well, that's interesting. Um, yeah, so she and, what about during the day? Does she is she clingy during the day? No, she's totally

Lauren 53:11
fine at daycare, like she's a different kid. And then she comes home and yeah,

Scott Benner 53:15
yeah, maybe she just loves you extra Yes.

Lauren 53:18
Her her attitude shows for sure she loves me the most. Is

Scott Benner 53:22
your husband a redhead? No, oh, Where'd it come from? Do you know, just

Lauren 53:27
generations back on both sides, like, actually, my husband is dark, complected, like dark eyes, dark facial hair and hair, and I'm just blonde blue, and she's she's redhead. Yeah,

Scott Benner 53:39
that's awesome, but you just said my husband's got dark facial hair and hair. And I was like, what happened? Oh, maybe she saw that new Eminem video, and she wanted to make sure I wasn't confused

Lauren 53:51
facial hair. And then I was like, Wait, he has hair too.

Scott Benner 53:54
I mean, I just assumed all of his hair was dark when you like, I didn't know where you're gonna stop. You're gonna be like, Oh, this hair is very dark too. It's all very dark. But who would know I sleep with my daughter every now you're sleeping with your daughter, and you know you've got four more years, so you've got plenty of time before you have to look at that again. All right, listen, is there anything we haven't talked about that we should have, anything that you've left off that you thought was interesting for people? Why did you want to be on the podcast? By the way? What mode? Way, what motivated you to do

Lauren 54:24
this? Just for fun? I thought it would be fun to come on and have a chat. And I just listen to you every day. So I'm like, Oh, I and it's interesting. You've never been to Canada, and so I'm always like, what's the holdup?

Scott Benner 54:36
Like, come see I mean, it sounds cold and there's a bear. That's one thing

Lauren 54:43
people tell you all the time. They're like, yeah, come like, it's nicer and it's nice here, sure. But like, We're driving to Florida in March, and I like, I can't wait to go see like, different states. How

Scott Benner 54:54
long is it going to take you to drive to but the way you said Florida, how long is it going to take you to

Lauren 54:59
get there? I. I believe it's about 20, around 28 hours with the kids, it's probably going to be 32

Scott Benner 55:08
Oh, my God, so. But you have a rolls. Royce, what are you driving? Like? How comfortable is the ride going to be? What are we talking about? Well, you use my husband's work truck. You're going to go in a Oh my God. Is that going to be comfortable? See right away, I'm such a baby. I'm, like, that does not sound comfortable. Well, it's

Lauren 55:24
like a Ford, like, f1 50, or whatever they are. They're like, you know, nice truck, yeah. And so we'll, we'll take that, you know, because you got the cap, and I plan on buying a lot. So we got to have space. What are you bringing back

Scott Benner 55:35
from Florida? Bo constructor, what are you getting?

Lauren 55:38
So many Disney Mickey ears. Who knows this is the first time taking the kids. So we were like, Let's just drive. It's cheaper to drive. What

Scott Benner 55:48
would it have cost to clone? Yeah? Like, I guess you gotta fly four people two ways. You gotta rent a car while you're there. That's the extra stuff. So what is that? That's a few $1,000 I imagine, right?

Lauren 56:02
Yeah, I think just the flight alone would be like, four grand and then, but then you have to travel with the, like, the booster seats and stuff at this age, which, like, That's annoying. So I just want to come and go. We we're gonna do like, Airbnb and not stay on resort.

Scott Benner 56:18
That's smart. Are you gonna make stop sick? Have you, I mean, it's a long trip. Have you, like, built in other places where you think you'd like to see along the way? Yeah,

Lauren 56:25
we didn't map it out fully yet. We still have some time, yeah, like, we want to hit some cool spots and seeing some like, we'll drive kind of like, I don't know, we'll stop around 5pm each day, so we'll be on the road, like, for hotels two nights.

Scott Benner 56:41
So you think so this is going to be almost like a two week trip for you when it's all said and

Lauren 56:46
done. Oh yeah. I asked my husband. I was like, Can we just go for like three weeks and do like, Lego Land too? And he was like, Okay, so,

Scott Benner 56:54
yeah, yeah, we'll just what's he doing? Yeah,

Lauren 56:58
he has his own company for, like, construction or, okay, yeah, yep, yeah. So he built, he built our house. And, yeah, I mean, I don't want to give him too much credit, though, okay, because it gets a little hard headed, and

Scott Benner 57:11
he might want sex every three years. And then, yeah,

Lauren 57:14
oh yeah. And he's like, so, I built your house. So, you know,

Scott Benner 57:21
oh, I know how. I know it makes sense to me. I mean, I have a light outside of my garage isn't working. If you can stop in New Jersey on the way through and fix it, that'd be awesome. Oh yeah.

Lauren 57:29
Oh yeah, yeah. It's

Scott Benner 57:30
lovely. I mean, like, Would you stop in, like, DC, like, to see Washington. Would you stop in, I don't know, like, the Outer Banks, North Carolina, as you went down, like, do you have things like, you don't even, yeah,

Lauren 57:43
I am actually excited to go to North Carolina. Like, I heard it was nice. What

Scott Benner 57:48
do you find out? Every one of our states looks exactly the same. And, oh, okay, and it doesn't look that different than Canada. You're gonna be so pissed.

Unknown Speaker 57:58
You're gonna be like, this looks like home. What the hell? Yeah. Well, I

Lauren 58:03
mean, as long as we can stop at every target on the way down, I'll be good.

Scott Benner 58:06
You're a target girl. You like the target? I like

Lauren 58:09
Target. Yeah, for sure. We had one here for like, a second, and then they took it away. I have no idea why they take six months.

Scott Benner 58:20
Why they, why are there disappearing targets in Canada?

Lauren 58:24
No, I don't know. Oh, we're gonna take

Scott Benner 58:26
Yeah, oh, Lauren, I'm gonna call your episode disappearing targets.

Lauren 58:30
Yes, please. Disappearing targets. Yeah, just

Scott Benner 58:33
laugh. It's a little bit what it's like talking to you, because I, like, I set up a target, and then it seems like it's gone before you get

Lauren 58:38
to it. I know, I know it's so hard my own brain. Is

Scott Benner 58:43
it really, like, finish on that? Like, what's it? What's it like to manage through a day when you're jumping around like that?

Lauren 58:50
Yeah. I mean, sometimes it can be, it can be challenging, like, especially when everyone's kind of home, we're, like, just the routines of, like, the day to day life, like I am so routine and like, time and and like, if I'm five minutes past the time, it's putting me in a bad mood. And these voices in my head are, like, hurry up a lot. Like, I don't even know how to explain it, so all over the place, but it really benefits me at work. Like, I could never sit in front of a computer and, like, do work, because as we're sitting here, like, like, both of my legs have been moving the whole time and I'm sitting so then I'm like, okay, like, I gotta get to work and, like, move my body. You know,

Scott Benner 59:29
I'm interested, if you ever go in the GLP, if that changes, Oh, you think it'll calm me down, and I don't know. I mean, if ADHD is, like, inflammation related, and GLP reduces your inflammation. I just wonder if I have no idea. I'm just wondering if it would, if it would help or not. I don't, it may not. Yeah, I'm interested. Well, maybe

Lauren 59:50
I it used to be worse. When I was younger, I just smoked a lot of weed, and then, like, I think over time, it kind of just, I don't know, mellowed me out a bit. Like, this is mellow for me. Okay, and it used to, it used to be, yeah, it used to be a lot worse.

Scott Benner 1:00:04
Are you still managing with the weed? No,

Lauren 1:00:06
I haven't. No, it's been, like, 10 years, really.

Scott Benner 1:00:09
How what made you stop having kids? Yeah, and then

Lauren 1:00:13
I didn't want to pay for it, like I was always hanging around people who who just had it all the time, and so I never paid for it, and that, I was like, Wait, I don't want to go search for it, pay for it.

Scott Benner 1:00:25
Yeah, I almost said something. So I'm sure that I would like, people wouldn't like, but I'm just gonna say, anyway, we'll beep it out so you stop hanging around guys that would trade wheat. And then you, you were like, I'm not doing this anymore. Am I close? Lauren, no,

Lauren 1:00:43
I stopped. No. It was like girlfriends too. Like it was the mixture of male and female hanging out and yeah, and then I didn't want to pay for it.

Scott Benner 1:00:56
Before we started recording. I only said that for your husband, because I realized when he listens back, he's going to be very immune. Going to be very amused when we before we started recording. Like, I tell people like, you know, I'm I usually say something like, you know, if you get really comfortable and you say something that's crazy, like, I'm not going to stop you. So I tell people, you got to be your own guardrails while we're talking. And today I said, like, you know, if you have like, a story about, like, shooting heroin in your eyes, and you were just like, oh, I have stories. Like, wait. Like, Normally people would go, do people shoot heroin into their eyes? Scott, that sounds ridiculous, but no. You were like, no, no. So there's part of me that wanted to just ask you what those stories were, but I'm afraid that you have children, and one day they'll find out what you said. So, yeah, yeah.

Lauren 1:01:39
Well, for sure, and there's probably going to be so many people that listen to this that I know that. You know we gotta keep those, keep those locked up. You gotta keep

Scott Benner 1:01:47
your crazy childhood stories aside.

Lauren 1:01:49
Alright, oh yeah, yeah, we'll keep those and ruin the ball.

Scott Benner 1:01:53
Alright. Well, I think you should probably try wheat again.

Lauren 1:01:57
Yeah. I mean, hey, yeah, no, it's Yeah. I mean, I know it works, right? So I did eat an edible once, and that was the worst experience of my life. So I won't ever do

Scott Benner 1:02:06
that, though. Yeah, the people who smoke will tell you that the way that the edibles metabolize is just too like, you know unknowable. So it's not really something that you can kind of manage,

Lauren 1:02:17
no, for sure. I mean, a little bit goes a long way, and I had no idea, so I ate a full, like hat, almost a full cookie. Yeah, I had to actually call my my diabetic brother, and say, I'm dying. You need to come help me from the couch to the bed, and I'm gonna die here.

Scott Benner 1:02:35
There's that great 911 call the guy gets on and he's like, my wife and I tried weed, and we're dead. It's such an old, like, internet clip, but I love it. I just love how assured he is that he's dead, but he's calling for help. It's awesome, but no, I mean, listen, I'm not pushing drugs on you. But, I mean, if it helped you in the past, and I don't know, yeah, yeah, no, my husband has

Lauren 1:02:58
mentioned it to me a couple times. Is that while you're yelling at drawing or something, yeah,

Scott Benner 1:03:07
he's like, maybe you should get high and stop yelling at me.

Just be nicer. I'm

building a house. Leave me alone. It's fine. If you didn't torture him, somebody else would. So,

Lauren 1:03:22
oh, I know he's total opposite of me too. Like, super quiet, yeah, yeah, yeah, he'd be so bored. Though, if he wasn't married to me, I actually I tell him, like, I think he would be bored.

Scott Benner 1:03:32
Oh, is that what you tell yourself? Yeah, yeah. My wife says that too. She's like, you like being challenged. I'm like, not this much. Yeah, not this much. You can back off once in a while. It's okay, like, what if Scott had an easy day? Every once in again, you know what I mean. All right, Lauren, I like you. You This was fun. I appreciate you doing this with me. Well, yes, thank you for having me on was it actually fun? You said you did it for fun. Did it actually end up being fun?

Lauren 1:04:02
This was so fun. Oh, good, yeah, this is so fun. Oh, good. I'm glad, excellent. I would say, Let's do it again, but it took, it took so long to come on. So you know, maybe I'll see you on my journey. Yeah, yeah,

Scott Benner 1:04:13
yeah. If you sign back up now, you could probably get back on in a couple of years. Yeah, yeah. Listen, and so that, you know, I'm going to ask Rob right now just bleep out completely so nobody knows what I said there, and let their minds filled in, and also bleep it out just now where I said it again. So, and you could leave this part in Rob, so there you go. I don't want you great. I don't want your daughter here in this one being like, wait, what?

Lauren 1:04:37
Yeah, yeah, yeah. Or Mike's not into, which you you probably know, you know he's

Scott Benner 1:04:41
older. I don't know, with how pushy you are, I'm assuming he'll figure that out on his own. But yeah, all right, this is gone off the rails. We're definitely calling this one disappearing targets. And yes, thank you very much. I'll talk to you. Hold on one second for me. Okay, you.

A huge thanks to Omnipod, not just my longest sponsor, but my first one. Omnipod.com/juicebox if you love the podcast and you love tubeless insulin pumps, this link is for you. Omnipod.com/juice box. Today's episode of the juice box podcast is sponsored by the Dexcom g7 and the Dexcom g7 warms up in just 30 minutes. Check it out now at dexcom.com/juice box. A huge thanks to a g1 for being a long time sponsor, don't forget to go to drink ag one.com/juice box to get that free special offer for Juicebox Podcast listeners. The Diabetes variable series from the Juicebox Podcast goes over all the little things that affect your diabetes that you might not think about, travel and exercise to hydration and even trampolines. Juicebox podcast.com go up in the menu and click on diabetes variables. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. If you're not already subscribed or following the podcast in your favorite audio app like Spotify or Apple podcasts, please do that now. Seriously, just to hit follow or subscribe will really help the show. If you go a little further in Apple podcast and set it up so that it downloads all new episodes, I'll be your best friend, and if you leave a five star review, ooh, I'll probably send you a Christmas card. Would you like a Christmas card? Hey, what's up everybody? If you've noticed that the podcast sounds better and you're thinking like, how does that happen? What you're hearing is Rob at wrong way. Recording, doing his magic to these files. So if you want him to do his magic to you, wrong way. Recording.com, you got a podcast. You want somebody to edit it. You want rob you.

Please support the sponsors

---

The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!

Donate

#1457 People Are People

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio -  Radio Public, Amazon Alexa or wherever they get audio.

Fatima, 34, from Bahrain, shares heartfelt insights on T1D management, drawing from her experience with her son, diagnosed at 2 and now 4.

+ Click for EPISODE TRANSCRIPT

---

DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome back to another episode of The Juicebox Podcast.

Fatima 0:15
My name is Fatima. I am a mother of a type one boy. He was diagnosed when he was two years and four months, and he turns for tomorrow.

Scott Benner 0:27
Please don't forget that nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. I know this is gonna sound crazy, but blue circle health is a non profit that's offering a totally free virtual type one diabetes clinical care, education and support program for adults 18 and up. You heard me right, free. No strings attached. Just free. Currently, if you live in Florida, Maine, Vermont, Ohio, Delaware, Alabama or Missouri. You're eligible for blue circle health right now, but they are adding states quickly in 2025 so make sure to follow them at Blue circle health on social media and make yourself familiar with blue circle health.org. Blue circle health is free. It is without cost. There are no strings attached. I am not hiding anything from you. Blue circle, health.org, you know why they had to buy an ad. No one believes it's free. Today's episode of The Juicebox Podcast is sponsored by the ever since 365 the one year where CGM that's one insertion a year. That's it. And here's a little bonus for you. How about there's no limit on how many friends and family you can share your data with with the ever since now, app no limits. Ever since, friends touched by type one's walk is coming up quickly on March 8 at the Saturday at Lake Eola Park in Orlando, Florida. Go now to touched by type one, to sign up and register. It's completely free. You're gonna have a wonderful time touched by type one.org, go to the programs tab, click on Steps to a cure. My

Fatima 2:11
name is Fatima. I am a mother of a type one boy. He was diagnosed when he was two years and four months, and he turns for tomorrow.

Scott Benner 2:21
Oh my gosh, you're not even two years into it, though. No, no, we're not two years Okay. Well, happy birthday to him. That's wonderful. Thank you.

Fatima 2:29
Thank you. He wants a Paw Patrol birthday, so he's getting one paw patrol.

Scott Benner 2:33
Yeah. Oh, there are people listening who will be super excited when they hear that. That's excellent.

Fatima 2:38
Yeah, you're past that phase, but people will relate. No,

Scott Benner 2:42
no, I'm thinking of two little girls specifically whose mom listens, and they're going to be very, very excited. So okay, well, excellent. Well, enjoy your paw patrol birthday. I hope that's wonderful. Yeah, of course. How did you notice that there was something wrong a couple of years ago? Right? So

Fatima 2:57
I'm not just saying this because he's my son, but my son is the life of the party. Like, if I'll take him to a birthday party, and you don't know how the birthday kid will look like, you'd actually think that my son is the birthday kid. He's always there the middle dancing, and he's happy and jolly, and it was like something switched that off. This was the first thing that I noticed. It's that the change in behavior. I was a grumpy he was soul king. He just didn't want to participate. All of the sudden, even his teacher in his pre nursery noticed that he was not being himself. So he was like, Okay, I remember. And just it makes me feel so bad remembering this. But I remember one day, was talking and crying about, technically nothing. I was trying to, like, lighten the mood. And I was dancing with him. I was saying, Oh, terrible twos. Terrible twos. Is that the terrible twos they're talking about? But, and then he

Scott Benner 4:00
was like, No, it's diabetes, but thank you. Yeah.

Fatima 4:06
And then I noticed it was, it was around winter. It was, yeah, January, December, that we noticed he was, like, peeing through his onesies, and we would be waking up five times a night. And he was like, he will be wet, like he we would be changing everything five times a night. So I was asking around. Everybody was saying, No, it's winter. Boys do that. Yeah, once, once a night, once in a blue moon, not every night. I just knew in my like, we do not have type one in the family, but it's just mother instinct. I knew something was wrong, and when you just Google it, it's it's there. So I was determined to take him to to his pediatrician one evening, and on that morning. Think I dropped him off into to his pre, pre nursery, and he used to be, like, excited just seeing the door on that day, he started crying, saying that he's tired. He just want to go to his grandmother house and sleep. This is after me, like, after 15 hours of straight sleep, we will be like, shaking him to wake up, and he he just still tired. I remember that I forced him to walk the couple of steps towards the the the nursery steps, and he took one step and then lay down on the floor in the street saying that he'll just sleep there. Oh yeah, that's how tired he was. Yeah. Yeah, oh my gosh, yeah, yeah. Now looking back, I was like, how could it? How could I just, how did I just leave him and nursery that that night

Scott Benner 5:51
is he, you have other kids. No,

Fatima 5:54
he's, he's my, my, my first born and only

Scott Benner 5:59
born at this point. So you have no you have no practice either, right? No,

Fatima 6:03
no, yeah, no, no. Like these days with social media, you, you sort of know what to expect. And I have cousins with with kids a similar age, so I'm you, and then you also compare two weeks before and at this point, and he's a completely different person.

Scott Benner 6:24
He changed so drastica, I have to say, while you were talking, I opened up chat GPT, and I just asked it, if my two year old is sullen and wetting the bed, what should I be looking into? It listed physical, emotional and developmental stuff, but under physical health, it said UTI, constipation or diabetes type one. Yeah,

Fatima 6:41
yeah, yeah. So at that night, I took him to the P the pediatrician, alright, and I just listed this. I went in and obviously, and I have to put it out there, they should stop giving lollipops to kids in hospitals. Like, what are they trying to do? Really? It just, Oh, my God. It still makes my life so difficult. I have to carry these lollipops that I don't have to Bolus for. So anyways, they handed him a lollipop in the doctor office. We walked in, I saw the doctor. I KNOW Him from before, obviously. And I told him, these are his symptoms, prick, yeah. So he was like, Oh, this is what's the issue with all of these educated mothers. If he just Googles things? I was like, no, just Prick him. And then it says, H i,

Scott Benner 7:36
yeah, yeah. Did he really hit you with the if you would have stayed in the kitchen. You wouldn't be here bugging me about

Fatima 7:42
this. No, no, no, he didn't, which was, like, he didn't want me to make it. He was like, Oh, the internet. Yeah, change, yeah, the internet, yeah. Let's blame the internet. Yeah. I just saw panic in his eyes. Obviously, I didn't know what H I meant, like, it's high, high. But no, the shock in his eye as and he was like, panicking, and he told his nurse to clean his finger again, Prick him again. And then he was like, Okay. It was like, mind you. It was like, around 8pm he told me, Okay, call your husband and go to this clinic. He gave me the clinic's name. He's a child indo, and he's my friend. Okay, do not go back to the house. Just go to this clinic. It's his private clinic. Go straight and let your husband meet, meet you there, right? And I'll speak to the Endo.

Scott Benner 8:38
Can I ask you, Fatima? Did he say he has type one diabetes or he didn't say it. This episode of The Juicebox Podcast is sponsored by ever since 365 and just as the name says, it lasts for a full year, imagine for a second a CGM with just one sensor placement and one warm up period every year. Imagine a sensor that has exceptional accuracy over that year and is actually the most accurate CGM in the low range that you can get. What if I told you that this sensor had no risk of falling off or being knocked off? That may seem too good to be true, but I'm not even done telling you about it yet. The Eversense 365 has essentially no compression lows. It features incredibly gentle adhesive for its transmitter. You can take the transmitter off when you don't want to wear your CGM and put it right back on without having to waste the sensor or go through another warm up period. The app works with iOS and Android, even Apple Watch. You can manage your diabetes instead of your CGM with the ever since 365 learn more and get started today at Eversense cgm.com/juicebox, one year, one CGM,

Fatima 9:51
he says, I remember that him saying that his his sugar is high and that there is no child in go in, in the hospital. In that he is working at, so he can't help me. I see okay, and so I called my husband. He met me there. It was, like a 20 minutes drive. It was a private practice. We walked in. They checked his a 1c, and I was like, you know, like, I remember just being like, blank, like I had and just like I felt the tears were were were starting to like my eyes were, were watering. I I really didn't know what to do. What does this mean? It was just like I wanted him to tell me that this was, like some sort of a mistake him. I remember him saying, This is what I remember that the doctor was saying. He said that his HPA 1c is nine, and he's not in no danger of DKA. So he told me to go back home and to head the next morning to the main government medical complex in the country, because if I go now, they won't do anything. There was no doctor on call. Tell people where you live. Oh, sorry, I live in Bahrain. Okay. It's a small country in the Gulf. We always say that it is near Dubai, but it's like a two hours flight. But that's why, where people recognize it as, yeah, all right, so it's really small country. People know each other, the child and go actually knew my my aunt. She works with him in the in the hospital. So I actually had doctors in the family as well. I remember that leaving the private practice, I felt so lost. This doctor didn't even say that my son has type one diabetes. He just said that that the the HPA 1c is nine, just go back home, come back tomorrow morning. First thing, okay, like this. This all the context that that I had. I left, I called his pediatrician, the one who told me to go to this doctor, and I was bawling, like he was crying and crying, and I I asked him, Why is it my son? Why? Like, he's like, have we've done everything right? Like, how could we have caused this? And he was like, There's nothing you've done. There's nothing you could have done to prevent it. I remember him giving me these lists of famous people and sport champions who've been living with with diabetes since a young age. And I remember him telling me that everything will be okay. I remember that it was a difficult night, but we're just watching him, and he's sleeping, and he looked so peaceful. That's it. So the next morning, we headed out to the medical complex. They did a blood test, which was the most difficult thing, you know, having to pin down at two years old. And now, in hindsight, I remember thinking that the education we had was just, you live in shock. You go in and shock, you live in shock, and you just think you'll go back home and you'll figure it out, but you just don't figure it out. And I thought that it was just specific to this hospital. Mind you, it's a good hospital. The staff is great. They were very like reassuring through listening to your podcast and everything it happens to be, I recognize that it's a universal thing going in and leaving in shock. Yeah. We went back home with an with Novo rapid Atlantis and tester strips, and they gave me a list of fixed doses, like before breakfast, give him one unit before lunch, give him one unit and Lantis. They started us on Lantus with two units. The next day, he woke up with a blood sugar of 40. And then these 15 minutes, 15 carbs. Thing we we saw that his blood sugar was 2.2 I think so, almost 40. Yeah, we gave him the the juice. We checked after 15 minutes, he was still below 70. Actually, they told us to treat below 90 at that point. So he was still below 90. We gave him another juice box and toast. So I don't, I haven't, I don't even know where his blood sugar ended up after that, maybe in the six hundreds.

Scott Benner 14:15
Yeah, yeah, right. You were like, oh, we'll fix this. You don't know what you're doing. What did you call the information? You call it messy, or how did you put it messy? Messy? Yeah, that's a really descriptive way of it's chaotic, right? Yeah, yeah,

Fatima 14:30
like, yeah, just check before and check after. But do not fix a high blood sugar. You just have to wait. It's dangerous, okay, but you're telling me that a high blood sugar is dangerous as well. So why can't I fix a high blood sugar 15 carbs? Like, I don't know. I remember. I remember leaving the hospital much more confused than walking in. There is nothing we can do. We'll just have to deal with it. Just

Scott Benner 14:55
deal with it. Let me ask you a question, like, Yeah, but rain is like. About the size of New York City, right?

Fatima 15:01
I have no idea. Let's make a check.

Scott Benner 15:03
Well, I'll look it up. But like, I mean, you're about it's one of the smallest countries on the planet. Am I wrong? 186.5 kilo a square kilometer. Okay, all right, yeah, that's going to be very close to New York very small, right? Very small. Yeah. And is this the only hospital, or is it just the one that you were sent to?

Fatima 15:21
There are many hosts, like, there are many hospitals, but this is the, the main medic. Like, we do have

Scott Benner 15:28
kind of, like, satellites. This is the main one. And then there's satellites. Yeah,

Fatima 15:31
we like, we do we have, like, like, we're in the UK. They have any NHS, like, the GPS, they're all around. We do have these small hospitals that will go and they are, there are government, government hospitals. You pay nothing, you get all the treatments for nothing. But then there is this main hospital, which is also a governmental hospital, okay, okay, so and off my trip, I paid zero for everything you insulin actually in in Bahrain is free. Wow,

Scott Benner 16:00
that's pretty awesome. Yeah, yeah. I want to go back to how, like, how messy it often I've been jumping around. No, no, you're not. Are you worried you're jumping around? I don't know. You're fantastic. You're doing great. Don't worry about it. All right, thanks. Even, like, did you grow up speaking English? Actually,

Fatima 16:17
I do not think that. I do not think that you'll come in here and you'll find anyone who does not speak English as a second language.

Scott Benner 16:26
Yeah. I mean, you're not reaching for words or anything like, I usually, no, it comes easy. Yeah, it's interesting. Like, I can hear it sometimes when you're when you're speaking with people who natively spoke another language into adulthood, and they'll get to a word and they can't find the word in English, you know, but I haven't noticed that once with you. Oh, thank you. Thank you. My question is, is that, like, you don't have any background in type one, there's nobody with it in your family, you haven't lived through it before? And the doctors, no, nothing, yeah, when they give you the information, they give you, right? And, yes, like, I know, they tell you, like, treat under a number, but they tell you, why do they tell you? What happens if it gets too low? Do you have glucagon on the first day? Yeah,

Fatima 17:06
they handed out to glucagon. They never similar to the to the States, from what I hear from your podcast, they never showed us how to use it. Just gave it to you. Yeah, just gave it. And they told me that the they told us that the instructions are on the box. And I do remember that the nurse practitioner was like, you know, very motherly. And I appreciate that from her. I remember then there was the nurse practitioner telling me that you will never end up using it, that in all of her terms there, she never heard about any kid who had a seizure, except for kids with with divorced parents? She's like, okay, nothing can happen now, for my relationship,

Scott Benner 17:51
your husband's like, well, now this is easy. Straight for me, she's never leaving. And

Fatima 17:57
I mean, I mean, what an odd thing to say. Yeah, it was like just to stick together. If you don't want this kid to get a seizure, you need to stick together. That's

Scott Benner 18:07
interesting. I message with this is gonna set. This gonna sound like a strange sentence, but I have a messaging relationship with a number of mothers from the Gulf region, like, do we call it? What do we call it now? Because when I was growing up, it was, they called it the Persian Gulf. Is it still that no Arabian now we call it the Arabian, Arabian Gulf. Okay, okay. And so from a number of different like, countries, I swear to you, like, I a lot of moms message me usually on Instagram, by the way, and I'm wondering how you guys are all finding those podcasts. Like, how was that happening? We went back

Fatima 18:39
home on during and my husband started research mode. Was talking to people and just just like searching for type one diabetes account on Instagram and around the countries, around pain, and we found a girl, like a mom. She's a type, she's a type one mom to a girl in Qatar, okay, which is like four hours drive, 14 minutes, maybe air, air trip. And she told us about you guys, so that's the power of social media. Yeah, wow, it's amazing. Yeah. And, and because of her, we knew that there is something called Omnipod. We knew that there's something called the Dexcom. We knew that fixed doses is not the way to go. You know, you just, when you go back home, actually, and start you feel that this is not working, but you just need someone to reaffirm that whatever is in your head is actually true, yeah, and that you're not just imagining that things are not working out. After I settled down, I also started searching, you know, like just going to these different type one accounts and in the region or in the country, and talking whoever is following them, looking for people. I know, like looking for people, for common friends. Yeah, so

Scott Benner 19:54
somebody like, when you see something happen, to be able to say that made sense. I had that feeling too. It's so comforting, right to hear somebody else have the same thought, right? Absolutely,

Fatima 20:05
I got to know to one of the girls I know about like I was not close friends with by then. She was type one, since she was since, since she was 11. And she's my she's my age, so I am 34 currently, and so, and she grew up with it technically. So I messaged her, and she felt like, I mean, all of these feelings get I think that it rushed back to her, especially that my son was very, very young, and she gave me the number of a type one dad like, also in brain, and he, she told me to speak to him. He's He's looping. He's doing great. His son's a 1c is in the fives. So we spoke to him. And I think this was the real turning point in our in our in our journey. Like my husband met with him, this guy like, we've never seen him, like in any other circumstances, our paths would never cross. He told us, like, did you notice that he was going high sometimes, like, 12 hours after his Lantis, and then going to and then dropping low, and all of these we've noticed, right? Yeah. We were like, Yeah, we keep on increasing lunch dose because we have no idea why is he's going Kai after lunch, this guy, he handed he handed us out. What's that called? The other long acting new one. Oh. Traceba, okay. Traceeba, and our line flattened.

Scott Benner 21:42
Mm, hmm, yeah, because you were actually getting coverage for basal lines throughout the whole day. Yes, yep, Lantus

Fatima 21:47
was like, it just did not work for us.

Scott Benner 21:52
Well, it wasn't lasting 24 hours, certainly. No,

Fatima 21:54
yeah, definitely. And no one told you about splitting the doughs. Or we were just either covering now, in hindsight, are they're covering the high with those for lunch, wood covering, sorry, the shortage of basal with Bolus for lunch and then feeding the lows during the night. Have

Scott Benner 22:12
I ever you listened to a lot of the podcasts? So I can ask you this, yes, have I ever discussed how I figured out that those older basal insulins didn't last 24 hours. Have I ever shared that? That's how

Fatima 22:23
I remember? No, not that you remember. Can you share? I tripped

Scott Benner 22:27
my way online onto a message board that was being used by pharma employees. Okay? And they were talking to each other. And this is, I mean, this is a long time ago, like security on the internet isn't like, you know, it's not like it is now. And I got into the board, and there were sales people in there, and they were talking about how bad they feel telling people that the drug lasts for 24 hours when they know it doesn't. Oh, my God, that's how I figured it out. And so I thought, I thought, okay, so like, How long am I seeing it last? And, you know, and then I for me. And in fairness, Arden was using lever mirror, it was about 18 hours. And so I just thought, well, I can't, like, I don't want to shoot it every 18 hours, because it kind of puts you like, it's It messes you up on the clock, you know, like, it's not there. So I thought, I'll try splitting it like, I'll do half now and half 12 hours from now, like, so when she gets up before she goes to bed, and, man, that works so well. And now we talk about splitting insulin, like, I think there's an episode about it, yeah, yeah. But that's how I figured it out. I just tripped across, like, like, massive Googling, until I found I guess I googled the right words, and it led me into this forum that they thought was private, that it wasn't. Yeah. So

Fatima 23:38
just imagine whoever did not have the luxury or the wits to Google these things, and they would be, they would have been in a loop.

Scott Benner 23:46
Wow. And it happens to so many people, because you put the basal in, and once it's in you, that you forget about it that's in there, and in your mind it's working, right? Yes, absolutely. And then it makes you mental trying to figure out, like, what's happening every day at this certain time, you know? And then, trust

Fatima 23:59
me, I was going insane, like, I think what to broke the relationship between me and this nurse practitioner. We were giving him the breakfast dose as I was, because, obviously I had to pull him out of nursery until his numbers are stabilized. We are still two weeks, or I think, three weeks into diagnosis, still still missing. No one's sleeping. Everyone's crazy. But we had him on the FreeStyle Libre, which was the only CGM available for purchase in Bahrain the next day, like the next day after diagno that, after we got him out of the hospital, we had him on FreeStyle Libre. That's all of my husband's research. Okay, I was not mentally there still, are

Scott Benner 24:43
you in a position where financially, this is doable for you? Or could anybody do this in Bahrain?

Fatima 24:48
Yes, fortunately, we are. We are fortunate. Not everybody could have done this in Bahrain. I know that the government gives me the tronics, but there's a long wait. List, a long

Scott Benner 25:00
waiting list for a long like it can go for years. I say, I say,

Fatima 25:05
yeah, the next day we had him on FreeStyle Libre, it's even it's, I think was one, the one that you have to scan, yeah, there was no way I was sending him to nursery when he doesn't know how he feels. And just relying on, relying on someone to send me the to send me his his readings every half an hour. Sure,

Scott Benner 25:26
when you don't know what you're doing, you can't even imagine. Like, how do I even explain it? I don't understand it. How am I gonna explain it to someone else to do it exactly, and then they don't love him the way I do. So, you know, right? Yeah, I

Fatima 25:39
know they're busy with other eight kids, or 10 kids, yeah, right,

Scott Benner 25:42
kids, I'd be willing to ignore, to help my own kid, not but

Unknown Speaker 25:45
be willing to kill to

Scott Benner 25:50
Exactly, right? So no, I take your point. I wouldn't have sent him either, probably for

Fatima 25:54
two weeks. We we stayed. I was just also just changed, a change of job. So I was new in my, in my in my current job, so I took a one week leave. My husband took more when we started going back to work. And I'm I this, this is the story of the beginning of the end of my relationship with the hospital. I used to drop him off at my mother's in the morning. I would give him his breakfast dose like we were still on pens. My mom would would just feed him, alright, and then, obviously, back then, it was horrible, because one unit would maybe add up to, I don't know, 3040, carbs for him, and we'd be chasing him around with food, because 30 carbs is a lot for a two years old. Yeah, over lunch, he was always going high, like breakfast. It was okay. It was it made sense. Lunch, it was always, always going high and and he would be high for hours, and then they told us not to fix that high. So I remember once my dad had him run around in the neighborhood just to bring his blood sugar down, and he was still not I think he was shooting up to the four hundreds, five hundreds, and he was just stuck there. Yeah, at that point, we had to call in twice every week to the hospital and just give them our readings. So they were seeing that our lunch readings were not okay, so they told us to increase that fixed dose from two units to four units.

Scott Benner 27:26
Okay, okay, I'm following so double

Fatima 27:29
a disclaimer at this point today, he got 1.8 unit for his lunch. Okay, that's how, how high they made us, right? They made us go too

Scott Benner 27:40
much or not enough? Oh, my, he dropped

Fatima 27:43
way too much. Okay, like for hours, and it was the first week of both of us being at work and being far and there was like panic.

Scott Benner 27:53
How old are your parents? By the way, early 60s, okay? And they No, they didn't raise kids with health issues. No,

Fatima 28:00
no, okay, yeah, it was panic juice box after juice box. And you know how that ended up? That was the end of my relationship with them. They never heard from me again. They called me once in a while to tell me, Oh, they there's this event for type one kids. I would like to take my son, but it's always during my working hours, so just never worked out. But yeah, no advice. Yeah, fan of

Scott Benner 28:26
me. He was having highs, and they doubled his insulin. Just

Fatima 28:29
horrible. And now, you know, Scott in hand side. Now thinking about why he was going high one, it was at the Lantus two. You know when they tell you that when you're giving, when you're giving insulin with through the pen, you should keep the pen a little like few seconds more. Yeah, hold it in there for a moment. Yeah, just my mom was too scared that she's hurting him. She was pulling it out. Oh,

Scott Benner 28:56
she might have also been pulling it out before she was not injecting it.

Fatima 28:59
Yeah, maybe, absolutely, um, now looking back, that's a huge part of

Scott Benner 29:04
what was happening. I see, Oh, she got nervous. She got nervous. He is her,

Fatima 29:08
her only grandchild at this point, so, and she loves him dearly. And you know how grandkids are with their grandparents, sure he knows how to tick her boxes and to switch on her switches. So, yeah, so she didn't want to do on, to do anything to hurt him, and she was they were just like, I think they were not asleep. My My parents were not sleeping as much as we were not sleeping just thinking about him. Yeah,

Scott Benner 29:34
no, I understand, yeah. It's difficult for everybody, not just, not just for the kid, not just for the family for the parents, everybody involved, like I saw it, messed with everybody who cared about Arden, like you said, out to grandparents and cousins and everything. And everybody had a different reaction to it. Absolutely,

Fatima 29:51
yeah, absolutely around this point was we started listening to you. My husband was talking about you, like this. I'm kind of like magician. He's saying that there is no restriction. He's like, more insulin, more insulin, and then look like it's just like we knew that this is what we wanted our kid to grow up with no restrictions. This condition should not hold him down. And you know, when you give birth to a kid who you see that he's a smart and social and intelligent and he knows how how to like present himself. You have great hopes for him, sure, and it's always my kid, he's going to do great. I think all parents are entitled to feel like that about their kids,

Scott Benner 30:41
yeah, and to work towards it right off, absolutely, absolutely. Then

Fatima 30:45
I started listening. I started speaking to these different individuals with type one accounts around in the region. I started feeling that it's the heart, but it is achievable. We went back to our indo at that point, we people were advising us to shop around for in those, I didn't really find a lot of child in those in our country. I can think about two, one that we already saw Okay, and we were following up with he was, he was such a, like, a nice, a nice guy. You know

Scott Benner 31:19
how it is, yeah. Well, yeah, that's people's first thought is like, well, your endo sucks. Go find another one. Like, I don't know what tells you the next one's gonna know what they're doing either. So, oh,

Fatima 31:29
the next one was, was a horrible experience, Scott. Someone told us about another indo, and we, we went to her. Obviously, you wait for hours, and then you go in and you're tired, and by then, we already did our research. We know that we wanted the omnipot Five. We know that we wanted the Dexcom that these fixed doses are not working with us. We wanted to start on a carb ratio. And we were, like so optimistic. Everybody was talking like, saying good things about her, and we told her that you wanted to put him on the omnipot five, and that we will, we will find ways to get it. It's fine. We can find ways to get it. But what do you like? We asked her, What do you think? And she was like, very judgmental. Like she turned she was like, You do not have your child the best interest at art the Omnipod is not nearly as good as the Metatronic 780 Okay, I have never even researched the Metatronic 780 with all due respect, but I do not See my very active child having tubank on him. And it's a huge it's the size is a huge compared to his

Scott Benner 32:47
age. If it's important for you, right about the size and the tubing, then it's important. But the other thing is that, listen, whether you chose Medtronic or tandem or omnipot or, you know, they're they all work really well. Like, yeah, yeah. How would that be you not having their best interest at heart? I

Fatima 33:04
don't know. Okay, I don't know. Like she was really, really pushing wood for the Metatronic. And you do not tell a parent that they do not have the their child's best interest at heart. It's just, it's just a

Scott Benner 33:18
no go. I have to tell you, I find it oddly comforting that, that there are terrible people in all countries. I really felt good about that. I was like, Oh, so it's not just here, it's everybody. You can you find

Fatima 33:32
someone, somewhere and and everywhere.

Scott Benner 33:36
No, it just, it really is, like a real I mean, you can think, Oh, it's here, or, you know, it's terrible where I am. Or, you know, like, you know, other places suck. But, like, the truth is, is that people are people, and communicating, communication skills lack all over the world, you know, I mean, like, I'm sure that person thought they were saying something valuable to you, but look how it came out. Yeah,

Fatima 33:57
and, and then she followed it up with asking me if I was staying with him at home. And I was like, No, my husband is taking over this week. I went back to work, and she just gave me that look, that, damn you working moms. Oh,

Scott Benner 34:13
is that now? Is that cultural? No, not at all. Okay, all right

Fatima 34:17
at all, yeah at all. When we were like, No, we still want the Omnipod five just please write us a prescription. So she was like, anyways, I can't write to a prescription. There is no representative, and if anything happens, then no one can help you. My husband was telling her, if anything happens, we'll just throw out the pod. Yeah,

Scott Benner 34:39
right. Oh. She was worried that if you got a bad pod, you couldn't get a replacement. I

Fatima 34:45
don't, you know, with the with the Metatronic, if anything happens, they have to, like, replace the entire thing.

Scott Benner 34:51
Medtronic is represented in Bahrain, where the Omnipod isn't it? Well, listen, if you have the money to go buy them in cash, you have the money to buy a couple of extra ones, right? Yes, yeah, yeah.

Fatima 35:00
And we did not even this was not a concern of ours. How come is it a concern? First of for her, yeah, when she saw that, we really did our homework that things are not going her way. And, oh, by the way she was looking, she was trying to arrange his numbers so he will be stable at eight millimoles, which is 144 which is too high, like, I don't want him

Scott Benner 35:25
to be stuck. You had stability at a lower level, and she wanted you to move it up. Yeah, with the

Fatima 35:30
trace Bo, we did the trace by did wonders. You

Scott Benner 35:33
got the diagnosis with limited information. Got sent home, not really understanding anything. Gave you gluten, didn't tell you when to use it or what it was for. You came in with a lower stable, a 1c they tried to raise it. You asked for a pump. They said no, but you just having the you're just having the classic type one experience.

Fatima 35:52
Yeah. I mean, I mean, by then, we were like, I think a month or so into diagnosis, when I saw her, we're still lost. Yeah, no, I'm sure still, like, lost, like, I couldn't eat. I just feel that I couldn't keep my head above water. I was, I was devastated, and to hear her saying that, and then, like, when she saw that there's no like, these are like notes and no go with these, with these guys. And she turned to her nurse, a practitioner, and she told her to just ask the next patient to come in. Oh, they just kind of disrespectful. So disrespectful. It's like, I left. And I was like, I'm never going to see her.

Scott Benner 36:32
These people are leaving now, yeah. Oh, you got you got ushered out the door. How about that? Yeah,

Fatima 36:39
yeah, like, Oh, my God, I can never get over her. Let

Scott Benner 36:44
me ask you, is it fair? Like I usually think of it as you know people you know, go looking for information, find the podcast and find it valuable, but you almost got forced into my arms. Oh,

Fatima 36:56
they, they were pushing, pushing me into your arms. Yeah, yeah.

Scott Benner 37:00
Well, I have to thank all the bad doctors out there. Appreciate it. Yeah.

Fatima 37:05
So we went back to the also, the first end row, and we asked him about the Omnipod. He was like, I can write you the prescription for the that he's more open minded to like, what do you want to do? But he also lacked. I feel he didn't know that the omnipot Five, like the closed loop system, the algorithm was there. He just knew about omnipot Dash. Okay, at that point, that was January 2021 I'm not sure when the omnipot five came, but at that point, I felt that he didn't know about the Omnipod five. He just thought that we're talking about the omnipot Dash. He was like, I could write to the prescription you choose. He still advised us to go with the with the 780 saying that the and I quote, it's like comparing an iPhone to an ocher. That's

Scott Benner 37:55
what he told you. Yes, I don't know omnipot. I'm looking here. Omnipod five was officially released the United States in early 2022

Fatima 38:04
and, oh, sorry, yeah, our dining room says was 2022 not 2021

Scott Benner 38:09
Yeah. I just, I was getting, I know you're telling the story, as it happened. I'm like, why is that not lining up? But okay, no, yeah, by the way, I hear really great things about the 780 G from a lot of people overseas. I do

Fatima 38:20
not have an issue with the 780 G. My issue was the size and the tubank. You know, you have to, I'm twice. I'm trying to, like, have him have the most normal experience and just not to feel like the teen he's carrying things around. You

Scott Benner 38:37
had a preference, that's all, yeah,

Fatima 38:39
I had a preference. And he's so tight, he was tiny at that point, like the 780 felt like, like a massive device for such a small little kid. Yeah, yeah, for such a small little kid, this is

Scott Benner 38:52
years ago. Now, actually, all the people working in Omnipod won't even know if this is true, because they're probably all gone by now, but years and years ago, they used to have a photo of Arden wearing an Omnipod on her arm, up at up in the office to remind them that that the pod wasn't as small as they thought it was. Yeah, because it would look so big on her, and they've they've shrunk it down since then. But the other was a picture of it on her because, you know, even that looked big, and now they've made it smaller since then. Listen, there are plenty of people running around with using, you know, two pumps that like them. But again, if it's, if it's why,

Fatima 39:27
I hear good things about the T slim, I hear good things about the seven ATG, right? I have, it's

Scott Benner 39:33
just a preference. Yeah, yeah, exactly. And I don't, it's funny, because you went from a doctor who just said, I don't care what you want, no to one who sounded like they just didn't know. And they were like, Hey, do whatever you want. It's fine. I'll write it. I write it,

Fatima 39:43
yeah, like, like, because he saw that we're doing our research, and this is something I appreciate about him, especially with with the with diabetes, it's really an ever revolving education, ever evolving education, yeah, for sure, and if you do not, if the doctor do not know. Everything, then maybe listen to your patients who are living with it. Yeah,

Scott Benner 40:03
Jesus, yeah. I'm gonna interject here for a second and tell people that if you're ever upset that I bleep out the cursing on the podcast. I do it for, like, a specific reason, and I'm talking to you today. I feel very good about it. The reason is, is that Apple podcast is the way that most people around the world get podcasts. If I curse in the podcast and make this an explicit podcast, I immediately lose distribution in China, India, Brunei, Nepal, South Korea, Belarus, Uzbekistan and Libya, like it just goes away. And then there are like 27 or so other countries, including Bahrain, where you can opt in for explicit content, but you would need to know how to do that. So if you if I was an explicit show, and like, you know, a cutter, Bahrain, Saudi Arabia, United Arab Emirates, Singapore, Lebanon, Libya, like a lot of places, if you go into your apple podcast app in those countries and search type one diabetes, and my show is labeled as explicit, it won't even come up like you won't know it exists. So the reason I make the show clean is so that people in all these other countries can can get to it. Yeah,

Fatima 41:20
am I mistaken? The paid podcast you can hear it on, yeah,

Scott Benner 41:25
but I don't even tell I don't even tell people about that, because it's there for the people I already

Fatima 41:29
paid. Oh, okay, thank you. This is my way. This is my way of paying it forward. I appreciate that. But

Scott Benner 41:35
yeah, you can through Apple podcasts, you can pay for the show, and what that gets you right now is the Pro Tip series without

Fatima 41:43
every day like, right? Yeah, before you can get to hear it before,

Scott Benner 41:47
yep. And whatever show comes out today, the people who paid got it yesterday. They're ahead by a day, so they always have kind of more content available to them if they want. And every once in a while, when I'm able to do it, I'll throw up like a, like an episode that's not bleeped out. The problem there is, it's an, actually, an extra editing expense, yeah, well, it's an expense, you know, the guy's gotta, he's gotta edit the show once for sound, and then he's gotta go back and edit it again to take and then he creates two files, and it's just more work for him, and then that's more hours he's working for me, and more money I have to pay him, and so it's difficult, but there's a fair amount of people who pay to listen to the show. It's very nice. I appreciate it. Pays for my car insurance. So thank you very much. You deserve it. You deserve it. You're very nice. Thank you. What's your husband's background? Like, I'm interested in how he went out researching. Like, what does he do for a living. He

Fatima 42:40
works in one of our like, not, I think that oil refinery, okay, company.

Scott Benner 42:47
Is he an engineer, or does he do the business?

Fatima 42:49
No, he's, he's, he's, he has a desk job. Okay, nice.

Scott Benner 42:53
And he just thought, I can go find out and learn more about this. Social

Fatima 42:57
media is a strong, a strong, strong factor in our in our journey. Wow, because of you, and thanks to you, we also got to know about Integrated Diabetes. Oh, and yeah, and we, we worked closely with Tavia vital, and this is a shout out for her. She's amazing, amazing person. We worked very closely. We did three months retainer, and then we did a one year retainer. And I mean, we wouldn't have known anything without her. The amazing thing about her is that she's a type one herself. She can she understand you as a parent, but she can tell you, how does it feel if a person goes low, if a person goes high, all of that. So, so I'm really, really thankful for her. I

Scott Benner 43:45
saw Tavia at dinner at touch by type one last month, and we didn't I think I saw her for like five minutes, and I thought, Oh, I'll see her later and talk to her. I never saw her again for the rest of the weekend. She's

Fatima 43:55
an amazing, amazing person. I keep thinking about renewing retainer just to have, like, the comfort of having someone just tell you that you're not going crazy, especially, honestly, like, for a while, we've been doing well, the omnipot five Dexcom really helps. I mean, for the first year, we had omnipot Five on manual, because his needs were were so little. But then when he reached that six units a day, we switched to auto, and for a while we we saw good results, but then things changed. I still do not know what our breakfast and lunches are. Okay our dinner like I was telling you before we started recording. I slept for half an hour yesterday, and I am an exhausted, exhausted person at this point. I feel like you do not see that light at the end of the tunnel. I'm searching for it again, but I'm trying.

Scott Benner 44:47
Yeah, it's an it ebbs and flows. It really, it really does, like it's tough too been.

Fatima 44:51
It's been going on for a month, but I have no sleep.

Scott Benner 44:54
Tell me what's been happening for the last month,

Fatima 44:57
a breakfast and lunch. I can. And you, you just normally, he will eat like similar food throughout the day, like we would be eating something different during the weekends, but during the day, I You should know what his blood sugar would do, because he eats the same food. So for breakfast and dinner, for sorry for black breakfast and lunch, I know what I'm doing. I think his car ratios, like sometimes they go up or down by one by one carb or something based on day or body or whatever. And that's something, and that's something you can anticipate with the Dexcom. And if he's going low, just just, you know that it is an extra, you Bolus a little bit extra, so cover that carbs or whatever. But then for dinner, I feel like his his digestion is just so slow, so slow he would have a piece of a bread and some kind of spread that is not like fatty a chocolate milk that is plain sugar, like none of these healthy protein ones, if we give the full Bolus, he'll go low and then he'll go high, even with carby meals, like I started testing out on carby meals, just to see what's going on, and he would actually go low and then he will go high if I give the full amount. So I was thinking, this looks like a trend of slow digestion and I have to split Wallace, I asked around in the Facebook group who's also I'm very thankful for I had a lot of agreement with me that that digestion is really slow slows down towards the evening, and I noticed him his digestion slowed down around 5:30pm this is when he's just settling And just watching a show and then getting into his pajamas to just get ready for for dinner sleep.

Scott Benner 46:47
Do you think your dinners are? Are more dense in carbs than than Yeah,

Fatima 46:51
they are. They are definitely car beer, and I think because he also keeps asking for the for food, because he just doesn't want to go to bed. Okay.

Scott Benner 46:59
Oh, that's smart. Good for him. Yeah, Mommy. I'm thirsty, I'm hungry, I'm scared, I'm excited, I'm happy. I want to stay up. What do you guys do when I go to bed? You're like, we pass out. None of the things we used to do, yeah, none of the things we used to do, I'll tell you that much, yeah, no, not the

Fatima 47:26
show that I used to watch, I

Scott Benner 47:31
don't know what's happening, or the book I used to read. Yeah, exactly. So

Fatima 47:35
yeah, they are definitely car beer, like I would say that his his breakfast and lunch are normally around the 30 carbs, and then dinner is around 50. I see, I

Scott Benner 47:48
see, yeah, well, I mean, it could be just that you're not noticing any other prop, like any digestion issues. He's not constipated or having belly pain or anything like that. Right now. It's just okay, yeah,

Fatima 47:59
yeah. And, just, it's just a slow Digester. So what I started doing, and for a while, it worked, for a while that I started splitting the dose, like I would give 50% or 60% up front, I would Pre Bolus for five minutes. And by the way, we are on fiasco. Okay, so that helps also with pre policy for his age, and then, like, he'd eat his meal a little bit shy of the two hours Mark, I would be both saying the the rest before I see any kind of trending up. And for a while it worked. But for the last like week, he's going low, like, he's going like, low throughout the night, and I give him a lot of carbs, and nothing seems to be keeping up. So today, tonight, I'll be trying a more conservative insulin to carpe shoes. Still, I still was split Bolus, and I'll give him a little bit extra up front, and then the remaining I'll give him before the two hours mark. But it's just just,

Scott Benner 49:03
I don't know what's the target on the Omnipod five set too. Now, right

Fatima 49:07
now, I have it at 120 Okay? And on overnight, it's 110

Scott Benner 49:11
so you're trying. And what time does that come on? Lower target that

Fatima 49:16
was starting 9pm but yesterday, because I wanted it to pause just to see what I was doing. I kept the 110 target to start at at 12am and did that help? No, it was pausing insulin, and he was still going low. So the it was not budging like

Scott Benner 49:33
so it's coming from significantly before then. Yeah, so what's happening

Fatima 49:37
is, for six hours, I don't know you're getting extra.

Scott Benner 49:41
You're getting I'm tired, you're like, I have no idea what's happening. Please. Someone help me. So, so the meal is taking more insulin where you don't have it spread out correctly over top of the meal. And so when

Fatima 49:55
I bought the 50% up front, he would go, like. From his 80 to one to 120 maximum, and then he'll come down nicely and be stable at around 80. This is the first part of the Bolus. And then, if I don't give the remaining of the carbs, in two hours mark, or before that, he will be shooting to the 300 and he'll be stuck there. So he definitely needs something but,

Scott Benner 50:26
but once you put it in, then four or five hours later, he starts getting low. Yeah,

Fatima 50:30
like yesterday, he started coming low an hour and a half later. So I know for sure his insulin car ratio is just not working for that meal, even though this meal is nothing weird, like, yeah, no, I understand it's been Yeah. Can you try a a more conservative yeah ratio, or maybe, maybe on the second Bolus,

Scott Benner 50:52
on the second Bolus, yeah, I can put in something to stop that rise, but yeah, as minimal as possible, and don't worry about the carbs do more about what you know it's going to need. Does that make sense? You know when,

Fatima 51:05
when? When I keep hearing you say that, like, you know what he needs. I'm still not. I feel like my brain is about carb counting, yeah? Like, sometimes I will look into something, I'll say, yeah, it's more carbs than it really is. But I can never think about it in terms of insulin, unfortunately, not yet. Yeah,

Scott Benner 51:26
because it sounds like the dinner meal that first Bolus you're doing, it's solid, right?

Fatima 51:31
Insulin, oh my, it's amazing, right? And then at some point

Scott Benner 51:35
you need the rest for the maybe it's a fat rise. Maybe it's not the how much fat? No, there's no fat in it. I've

Fatima 51:43
been, I've been testing it on, on carby meals, like, completely, like white bread with, with, like, a, barely any kind of a spread on it, just for taste, these very unhealthy chocolate milk, which are plain sugar. Like, it's 14 carbs, the sugars are 14,

Scott Benner 52:03
yeah, but there's fat and chocolate milk, though, is it? It's whole milk, right?

Fatima 52:06
Yeah? But it's just so small, like, didn't have it, yeah? So it's just, it's, it's pure sugar. Like, if I give him this meal, yeah, in the morning, and I don't give him a solid Pre Bolus, he will be temp to the 250s

Scott Benner 52:22
so here's what I'm thinking like. When you split this meal, you give whatever you give as the first I'm writing this down in front of me. You give whatever you give as your first Bolus, and you have nice stability. And then how long do you wait till the second Bolus?

Fatima 52:34
An hour and 15 minutes, an hour and 40 or five minutes? Okay? And

Scott Benner 52:38
if you don't do that around an hour in that time period, you're going to see a blood sugar that goes up to, what, maybe

Fatima 52:43
to 300 Okay, 80, let's just

Scott Benner 52:47
say 250 for, just for fun, yeah. And before it goes up, is blood sugar's more like in the 80s, it's, it's good, right? Okay, yeah. So how much insulin Are you putting in for the carbs there? And then it doesn't matter, like whatever that number is. And then how much insulin would it take to turn a 250 back into an 80? So say you were trying to correct a 250 Do you know how much insulin that would be to bring it back down to 80?

Fatima 53:14
Correction away? For food, yes, 1.5 units. 1.5 food. Yeah, with food, it might take more. And then,

Scott Benner 53:22
in your situation here, when you're making that second Bolus, you're doing it by carbs. But how much insulin does it end up being?

Fatima 53:29
Yesterday, it took two units, two Okay, 2.5 to actually 2.5 okay. Today, it will do i Today, I will do 1.9

Scott Benner 53:40
I would try the 1.5 and see what happens. I don't know why. Like, I can't imagine why, but like, you're putting in this insulin and you're getting low, but yeah, if you didn't put it in, you'd be around 280 maybe 252 80. So just Bolus for the 250 instead of the carbs, and see what happens. All

Fatima 53:59
right, does that make sense? Yes, I hope twerks. Well,

Scott Benner 54:04
listen, I want to be clear. I don't know if it's gonna work or not, but it's worth a show.

Fatima 54:08
Some things we need to try. Some I know

Scott Benner 54:12
I'll accept an Instagram message of 1.5 worked or didn't work. I'd appreciate knowing. Oh,

Fatima 54:17
but let me go back to a few days ago, yeah. So what I did, I was thinking, I will give him something less by half a unit, all right, so we, I gave the the the half carb, the 50% of the car up front. I Pre Bolus, t8 he was, he was perfect. And then I gave one, I think, around 1.3 units because it was less carbs that meal, it was around 43 carbs, if I remember correctly. So I gave him the 21 carbs, and then I said, Okay, I will Bolus less by five carbs by six. Or five carbs, which comes around 0.5 or something. I forgot what's, what's the but it is, was less by by 0.6 minutes, so I gave the second part he was, he was okay. But then at around three hours, I he was still not coming down to to target. He was still, like, hovering in them, 140s and then, like, slowly, two, and then 50s, and so I was like, Oh, he needs the remaining Okay, so I Bolus, but because it was too late, he still shot up, yeah, yeah, it's too late at that point. Yeah, he's too shot up. You're gonna figure it out.

Scott Benner 55:41
Yeah, there's an amount of insulin there. That's going to work. I would try not being so stuck on what you think the carb count is, and focus more on how much insulin you think it's going to stop it without making it low. Today

Speaker 1 55:53
I am like reverse re engineering my brain to think that the second part needs a weaker insulin to car ratio than the first part.

Scott Benner 56:04
Yeah, right. Well, I mean, that's how it seems. So I think you'll do well, if you like, that's why I chose, like, a unit and a half because, yeah, because you seemed like, well, it could go 252, 8300, but it sounds like it might be a little less. So, I mean, what would it hurt if you did the unit and a half this time? Yes. I mean, let's say it went up to 180 you'd be like, Okay, well, that's better than it. And it does get low later, that'd be better. And you can work off of that then, yeah, absolutely cool, absolutely awesome. What else should we be talking about? Have we missed anything? I just

Speaker 1 56:35
wanted to talk because one thing towards the beginning of his diagnosis. It just hit me so hard. And, you know, I, as we spoke earlier, we had, you have all these dreams and all this love to this human being who's funny and full of life and just he's, he's amazing, and he says the smartest things, and you just, and then just hits you. It's like feels that something is is taking away from your motherhood, like you cannot fully enjoy your child. You're always thinking about him, like I drop him off to nursery, and then the Dexcom window is open on my desk at work, like you're not fully there at any moment in life, and and it just, it just really, really impacted me. And it just, it still continues to impact me. At that point, I had to seek therapy, just somewhere where you can talk and just feel that you're not crazy, like, reassurance that what you're feeling are okay. Like, I felt bad about myself. Think thinking that, why is it my kid and not that kid, or that kid or or someone else that I do not know and I can encourage? Like, I mean, for the first two sessions, it was my therapist just listening and me crying. It was like tears, yeah, or two full sessions, like, I don't remember seeing saying any any proper word. I have no idea how she put together, what I was there for, but it really helped. It made me feel that I'm not crazy, that I have the right to feel that about my kid, and because I feel like that's what my kid, I will find a way to figure it out. So I really, really encourage anyone who's feeling alone, any parent who's or caregiver who's feeling alone, to seek therapy, to just talk about it. Your feelings should be validated. It's okay to feel the way you're feeling. Yeah, doesn't say that you are a horrible human being, actually, in the contrary, it says that you are so in love with this small creature, that the human, human being that you, you're actually touched by what he's going through. And it really helped me, like, find some balance. I still, I still sometimes like feel so angry. It really helped me a lot. And also the the Facebook community, a Scott that you've built, is amazing. I was at a very low point and and I posted something, and this angel, her name is Julie. And I already asked for if it's okay to say her name, to say her name, her, her name is Joy that me, I don't want to say it wrong. Julie killer, K, E, E, L, E, oh

Scott Benner 59:40
sure, you know, she's been in the group for a number of years. She's,

Speaker 1 59:43
I mean, she just asked me to DM her, and she was reviewing all these like graphs. She's someone that I'll probably never meet. She's in the states, different time zones, different countries, different geographies and and different age group. And we were talking. Talking, I think, for all two months, making these little tweaks here and there, and changing settings, and then just talking and validating each other's feelings. She's amazing, like, I cannot even begin to thank her enough, and I think she deserves a shout out here. So thank you for that. I mean, it's one of the most selfish communities I've ever, I've ever came across honestly. I'll stop

Scott Benner 1:00:27
you for one second. You mean selfless, but you said self. Oh yeah, don't be sorry. No, sorry. So Julie, I know her name because she's helping to support a cause that you know is very meaningful. So I see your posts and they pop up in front of me. It's wonderful that you met somebody,

Speaker 1 1:00:44
a wonderful lady, honestly. Yeah, that's awesome, yeah. And maybe you can speak to Omnipod five, or to, sorry to Omnipod and Dexcom, so they can open up a small shop in Bahrain, or speak to one to or do one of the pharmacies, it's really a hassle getting them. I

Scott Benner 1:01:02
was gonna say, What are you doing? You having somebody in America buy them and ship them to you. So

Speaker 1 1:01:06
we ship omnipot Five from America. We found them on a website, but Dexcom it, we can buy it from Saudi Arabia, which is like a drive away. There's a causeway linking the two countries. They do not ship to Bahrain. They do not have a physical location where you can go and grab things. It's just like a representative that ships your order to a location in Saudi Arabia. So my husband's friend from college, he lives there, and we ship it to his address, and then we just find ways to get it from him, or he get it to us. So it's really a hassle. Okay,

Scott Benner 1:01:46
yeah, you are an island. That's I'm worried about that, right? Yeah, yes, yes, we are an island. How far is Saudi Arabia like by car?

Speaker 1 1:01:54
Uh, depending. You can get there in, I don't know, 30 minutes. Okay,

Scott Benner 1:01:58
and is that all over the causeway.

Unknown Speaker 1:02:02
Have you ever driven it? I've been.

Scott Benner 1:02:05
Am I driving over water on a bridge the whole way? Yes, yes, yes, awesome. Yes, technology, yeah,

Speaker 1 1:02:11
I want to invite you here, but you're not going to Canada, so I don't think we'll be here. Listen,

Scott Benner 1:02:16
I'll go anywhere. I'm invited if there's a nice group and we can talk. Oh, I just, I'd make Canada. It's cold, you know what? I mean, at least you guys have nice weather. Oh, no,

Unknown Speaker 1:02:25
no, no. Too hot,

Scott Benner 1:02:29
too humid. Oh, it's humid there. That's upset, horribly

Speaker 1 1:02:32
humid, 90% you have to come, you know? You have to come in in February or January. The weather is amazing. You can go to the beach in January and February and enjoy the weather, yeah. How long

Scott Benner 1:02:45
of a flight are we looking at? Last

Speaker 1 1:02:46
time I was in the States, it took me 19 hours. Oh, yeah, that seems like

Scott Benner 1:02:51
something I'm not going to do, yeah,

Speaker 1 1:02:54
I told you. But I also want to say that type one tend to find them each other. So we found, we found people around here with kids with type one, or they themselves are type one. And one of my very close friends now very, very close friends this type one, and she's du pink, and she's, she's an amazing human, human. It's good to have that community. It's good to normalize having these machines. My son is not ashamed of his machines. He show them around and tell people that these are his heroes. And he's into swimming class. He'll start, uh, he'll start horse riding soon. I think maybe, and I feel bad saying it, maybe without the type one, I wouldn't have been so focused and so like involved that he needs to be, like involved in these kinds of sports, and he needs to have targets and standards for himself. So

Scott Benner 1:03:58
are you saying that you think that you would have just expected those things to come, but now that type one's here. You want him to be. Yes, have those things so badly. You're you're pushing them forward.

Speaker 1 1:04:09
Okay, I'm not putting pressure, but I'm more, more like seeking them, like right here and there, and it makes you feel bad, but it's it is the way it is, and not giving up on him. Now, will I, hope I pray, that he will not give up on himself in the future?

Scott Benner 1:04:32
Okay? Yeah, I imagine he won't. He sounds like he's got great support. Can I ask you a question you talked about being tired a lot? Like, is it just recently, or is it been spread out over time, just

Speaker 1 1:04:41
recently, like I actually, because I've been here listening to your podcast, I think with the lack of sleep and everything, I haven't been losing weight, as I usually do. I have been tired, like I feel because I didn't I don't sleep. I feel that can't focus. So I did, I did test My TSA. And came back normal. I think I was just really sleep deprived and very low on vitamin D.

Scott Benner 1:05:05
No, I'm saying like, you really have to. Can get ahead of you in a tough way, and then you won't. You don't notice it for years, you know. So I just wanted you to go to the doctor and get a physical.

Speaker 1 1:05:16
Or I did. I got a blood test and checked my TSH. TSH. It came back. I actually expected thyroid because I just feeling this needs, like I might have been facing that's why I'm always tired. But my thyroid came back normal, like it was below

Scott Benner 1:05:34
two, good, good. That's good, yeah,

Speaker 1 1:05:36
and, but it was, I'm just really sleep deprived.

Scott Benner 1:05:40
Yeah, no, it's tough. It really is tough. And you're saying, Have you, I'm sorry, have you gained weight since he's been diagnosed,

Speaker 1 1:05:46
not gained weight, but I've been trying to lose weight. And that's not just happening, not happening. Yeah,

Scott Benner 1:05:53
I don't know if they the glps make it to Bahrain, but you know

Speaker 1 1:05:56
they are. They are everybody here is about losing weight. I know,

Scott Benner 1:06:01
right? Everybody, all of a sudden is like, look, is like, look how thin. Oh yeah, no, I hear you. Well, I wish you luck. I hope you find a way. Because I mean to your so much, yeah. I mean, listen, between 90% humidity and a kid with diabetes and not having sleep, I don't know where you're going to exercise, you know?

Speaker 1 1:06:15
Yeah, it's all. Everything is inside. It can't walk around. Yeah, being outside is not good. No, only for two months there. Oh my gosh. It's just, it's just too

Scott Benner 1:06:30
hot. Too hot. I got you culturally, like, what's the food like? Is that part of your issue? Do you think, or do you don't like,

Speaker 1 1:06:38
I think, like generally, we eat good food, like carby meals, yes, but there is always protein. Our food has, like the home cooked meals. Has never been a lot of oil. We switch to olive oils. Ever since his diagnosis, the food that we eat on daily basis. Never causes issues like I hear all of these people complaining about rice, and he eats rice every single day and does not it's very easy on his blood sugar.

Scott Benner 1:07:10
Surprisingly, what kind of rice is it? Just the white best fit your rice, just what? Oh, but it's basmati. Yes. Oh, so I was, I would have told you that, like, we had to switch Arden to basmati rice. It does not hit the same way, but regular white rice, like that you would get here, or brown rice, or even, like, anything like that, that hits harder. But basmati, for some reason, just does not hit as hard. But why isn't it like all rice? Or is it? I can't begin to, I mean, I can try to find out. So weird, yeah, it's probably the glycemic index is probably just lower on it. But I'm wondering what's gonna happen. Oh, basta. Rice has a lower glycemic index compared to many other types of rice, which is why it tends to have lesser impacts on blood sugar levels. You just got lucky. You're just, you're eating the right kind of rice to begin with. Yeah, we got lucky. Yeah, yeah, trust me, if you tried the other one, you'd be like, I don't. Bryce is horrible.

Speaker 1 1:08:06
I mean, he started, he doesn't like any kind of pasta, except for a spaghetti. And I can see the difference. It hits very hard, yeah. No kidding, we have to Pre Bolus way ahead. Do you

Scott Benner 1:08:18
know about cooking pasta then cooling it and reheating it, yeah, but

Speaker 1 1:08:22
you know, my mother thinks this is not the way to do it, and he should eat everything fresh out of the oven. And who am I to say otherwise? Well,

Scott Benner 1:08:31
you're his mom. You can say, Listen, basmati rice contains a higher proportion of amylose, a type of starch that is digested more slowly, this leads to a more gradual release of glucose into the bloodstream, and brown basmati rice has more fiber than white rice, so there you go. Now we know more about that than we know. Well, I can't thank you enough for coming on the show like this was really terrific.

Speaker 1 1:08:55
My pleasure, my pleasure. You're as Yeah, it's like talking to someone famous, who's

Scott Benner 1:09:01
the most famous person in Bahrain? Why are you laughing? Do you not have like singers or like we? Do? We do? I don't know who's your favorite who's your favorite singer. You're like Bruce Springsteen. No, I just, I just said the most American thing I could think of. That's all. I can't

Speaker 1 1:09:24
even think about name. Oh, they're the singer I like. It's, yeah, I don't know if you'd find his. It's Arabic songs. So,

Scott Benner 1:09:35
okay, you're not gonna tell me. Are you embarrassed? His

Unknown Speaker 1:09:37
name is, his name is Khalid

Scott Benner 1:09:41
Sheik. Let me see he's not coming up on my list of most famous Bahrain singers. Hold on a second. Yeah, these guys do not look like Bruce Springsteen.

Speaker 1 1:09:50
Okay, so, so, oh, wait, Khalid, are you getting all

Scott Benner 1:09:54
right? Yeah. So I have, I mean, I'm gonna mispronounce everybody's name, right? That's okay. I'll make it sound ha. Al Turk,

Speaker 1 1:10:00
Hannah Turk. She's a child. No, yeah, that's not my age.

Scott Benner 1:10:05
Khalid, Al sh man,

Speaker 1 1:10:08
okay, yeah, okay,

Scott Benner 1:10:11
all right. Nasra, A S S, a, l, a N, A, S, R, I

Speaker 1 1:10:18
No, oh yeah, she's a Syrian brain. She has, do I, I think she has the nationality with she's not originally from here. Yeah, she's, she's very good. She's very good as well.

Scott Benner 1:10:28
Then there's a couple of girls that are, one named like Madonna. There's Alam, a, H, L, A, M, nom,

Speaker 1 1:10:33
yeah, yeah. She's, she's well known. Okay, she's a very good thinker as well.

Scott Benner 1:10:38
Hind h, i n, d, yeah. And, okay, these are the and if I listen to their music, I'm not gonna, it's not gonna be American. Is there any American music that makes it

Speaker 1 1:10:47
to you? Oh, yeah, all American music that makes us what's your

Scott Benner 1:10:51
favorite kind of music? Then that comes from here, uh, American

Speaker 1 1:10:54
music. Oh, I'm not sure if these are American people, the American band. But I like, I like, Cold Play, Cold Play. Okay, yeah. Who else we just had, actually, a couple of, I'll tell you who was performing in a National Theater, just or will be performing, let me tell you, cold

Scott Benner 1:11:17
place from, from England, right from London, yeah, I think so.

Speaker 1 1:11:21
We have Calvin Harris performing soon, okay, not sure where he's from. We have Lionel

Scott Benner 1:11:31
Richie. Lionel Richie is coming to Bahrain. He's got to be 1000 years old now. Yeah, he is. He looks very old. He's 75

Speaker 1 1:11:43
Wow. And then we do have, oh, Sia. Is, is Australian, right? Sia? Yeah. I like Sia. I like Sia. She's very good. Who do we have also coming soon? Oh, we, actually, we have Eminem performing soon.

Scott Benner 1:11:59
No kidding. What are you That's awesome. He's got new music out now. Will you go? Will you go to any of this? Or no, yeah, Eminem

Speaker 1 1:12:06
is not my speed scene. Yeah. I would go to Coldplay. I would go to who else were they having? Well, I don't know.

Scott Benner 1:12:17
It sounds like you have an opportunity to hear a 75 year old Lionel Richie sing a Commodore song. So we

Speaker 1 1:12:23
had Kevin Hart come before, like the comedian, I went, Oh, he did

Scott Benner 1:12:27
his comedy. Is that? Is that a big venue that they they performed,

Speaker 1 1:12:31
a huge venue, him and the south, south african guy, what was his name? He's Trevor funny.

Scott Benner 1:12:39
Trevor, Trevor Noah, yeah, he is very he's very good.

Speaker 1 1:12:44
He's He's very funny. I went for Trevor Noah, honestly, he's one

Scott Benner 1:12:49
of those, by the way, here, I bet you a lot of people don't know that he's a stand up in America, but across the world, he's an incredibly popular stand up comedian. You

Speaker 1 1:12:57
what? He made me laugh so hard. It's been a while, he talks

Scott Benner 1:13:01
about his mom and yeah, and the

Speaker 1 1:13:03
way he travels around the world, and his different dialect back to,

Scott Benner 1:13:07
yeah, no, he's, he's very funny. I Okay, all right, you got, all right, listen, um, I really appreciate

Speaker 1 1:13:13
international we're international people. We're like, we know what's happening around the world.

Scott Benner 1:13:17
I know. I imagine. I just don't know how much you would care. Like, you know what I mean? Like, we do care. Yeah, care. Are you aware of, like, American news? Yes,

Speaker 1 1:13:25
we are aware of American news. It's impacting us some way or another. No kidding. Oh, that's interesting, yeah, but I don't think Americans are aware about news from the Gulf as much as as we are aware about their news.

Scott Benner 1:13:39
But, yeah, it's possible it would help us if we were actually maybe, yeah, listen, without saying a name, okay, yeah, yeah. Do you have a preference about who wins the the US presidential election? Like, do you care? Does it mean something to you if one of them wins over the other? Yes,

Speaker 1 1:13:57
it does. It always means something. It's always mean something to us, okay?

Scott Benner 1:14:01
And that's mostly about, I guess, about relationships

Speaker 1 1:14:05
in terms of pressure, terms of the economy, and obviously now with the political unrest going around in region, the region which is not very far from here, yeah, it's it's impacting us. Yeah,

Scott Benner 1:14:21
and we lend you money for drilling too. Is that right? Do you know about that? Like, I'm not

Speaker 1 1:14:27
sure, honestly, but maybe, maybe possibly, I think it's

Scott Benner 1:14:30
about, like, it's about credit, really, like, everything's, I think we

Speaker 1 1:14:34
also had, we have, like, purchased arms from the US as well. So it's

Scott Benner 1:14:39
that it's that big, kind of, like, those big ideas. Oh, no kidding, that's super interesting. Yeah, I don't know, like, I don't know if you pressed me, if I say

Unknown Speaker 1:14:48
trades with

Scott Benner 1:14:52
us, yeah. Oh, that's super interesting. Okay, all right, I really appreciate this. Hold on one second for me. I'm gonna stop the recording so.

I'd like to thank the ever since 365 for sponsoring this episode of The Juicebox Podcast, and remind you that if you want the only sensor that gets inserted once a year and not every 14 days, you want the ever since CGM, ever since cgm.com/juicebox, one year one CGM, earlier you heard me talking about blue circle health, the free, virtual type one diabetes care, education and support program for adults. And I know it sounds too good to be true, but I swear it's real. Thanks to funding from a big T 1d philanthropy group, blue circle health doesn't bill your insurance or charge you a cent. In other words, it's free. They can help you with things like carb counting, insurance navigation, diabetes technology, insulin adjustments, peer support, Prescription Assistance and much more. So if you're tired of waiting nine months to get in with your endo or your educator, you can get an appointment with their team within one to two weeks. This program is showing what T 1d care can and should look like. Blue circle health is currently available in Florida, Maine, Vermont, Ohio, Delaware, Alabama and Missouri. If you live in one of those states, go to blue circle health.org to sign up today. The link is in the show notes, and please help me to spread the word blue circle health had to buy an ad because people don't believe that it's free, but it is. They're trying to give you free care if you live in Florida, Maine, Vermont, Ohio, Delaware, Alabama and Missouri. It's ready to go right now. And like I said, they're adding states so quickly in 2025 that you want to follow them on social media blue circle health, and you can also keep checking bluecircle health.org to see when your free care is available to you. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. If you're not already subscribed or following the podcast in your favorite audio app, like Spotify or Apple podcasts, please do that now. Seriously, just to hit follow or subscribe will really help the show. If you go a little further on Apple podcast and set it up so that it downloads all new episodes, I'll be your best friend, and if you leave a five star review, ooh, I'll probably send you a Christmas card. Would you like a Christmas card? The episode you just heard was professionally edited by wrong way recording, wrongway recording.com, you.

وت بينر 0:00 مرحباً أصدقائي ومرحباً بكم من جديد في حلقة جديدة من بودكاست "ذا جوسبوكس". فاطمة 0:15 اسمي فاطمة. أنا أم لطفل مصاب بالنوع الأول من مرض السكري. تم تشخيصه عندما كان عمره سنتين وأربعة أشهر، وغداً يحتفل بعيد ميلاده. سكوت بينر 0:27 رجاءً لا تنسوا أن كل ما تسمعونه في بودكاست "ذا جوسبوكس" لا يجب اعتباره نصيحة طبية أو غيرها؛ استشيروا الطبيب دائماً قبل إجراء أي تغييرات في خطة رعايتكم الصحية أو تعديل جرعات الإنسولين. أعلم أن هذا قد يبدو غريباً، لكن "بلو سيركل هيلث" هي منظمة غير ربحية تقدم برنامجاً افتراضياً مجانياً بالكامل لرعاية مرضى السكري من النوع الأول للكبار (18 سنة فما فوق). ما سمعتموه صحيح، مجاني بدون أي شروط. حالياً، إذا كنتم تعيشون في فلوريدا، مين، فيرمونت، أوهايو، ديلاوير، ألاباما أو ميسوري، أنتم مؤهلون للاستفادة من "بلو سيركل هيلث" الآن، وهم يضيفون ولايات بسرعة في عام 2025، فتابعوهم على مواقع التواصل الاجتماعي تحت اسم "بلو سيركل هيلث" وتعرفوا أكثر على موقع bluecirclehealth.org. "بلو سيركل هيلث" مجاني، بدون تكلفة، ولا شروط خفية. لست أخفي عنكم شيئاً. موقع bluecirclehealth.org… تعلمون لماذا اضطروا إلى شراء إعلان؟ لأن لا أحد يصدق أنه مجاني. حلقة اليوم من بودكاست "ذا جوسبوكس" برعاية "إيفر سينس 365" – النظام الذي يحتاج إلى إدخال حساس واحد فقط في السنة. وهذا يعني جهاز مراقبة للسكري بتركيبة لمرة واحدة سنوياً فقط. وهذه هدية صغيرة لكم: لا يوجد حد لعدد الأصدقاء والعائلة الذين يمكنكم مشاركة بيانات الجهاز معهم عبر تطبيق "إيفر سينس ناو". لا حدود. حالياً، قريباً، يوم 8 مارس، سيقام حدث "تاتشد باي تايب وان" في حديقة ليك إيولا في أورلاندو، فلوريدا. ادخلوا الآن إلى موقع touchedbytypeone للتسجيل؛ إنه مجاني بالكامل. ادخلوا إلى تبويب "البرامج" وانقروا على "خطوات نحو العلاج…". فاطمة 2:11 اسمي فاطمة. أنا أم لطفل مصاب بالنوع الأول من مرض السكري. تم تشخيصه عندما كان عمره سنتين وأربعة أشهر، وغداً يحتفل بعيد ميلاده. سكوت بينر 2:21 يا إلهي، لم يمضِ على التشخيص سنتين بعد، أليس كذلك؟ فاطمة 2:29 لا، لم نكمل سنتين بعد. على كل حال، عيد ميلاده سعيد له. هذا رائع، شكراً. فاطمة 2:29 شكراً. هو يرغب في حفل ميلاد بطابع "باو باترول"، لذا سنقيم له حفل "باو باترول". سكوت بينر 2:33 حقاً؟ هناك من يستمع وسيفرح كثيراً لسماع ذلك. ممتاز. فاطمة 2:38 نعم، ربما تجاوزنا تلك المرحلة، لكن الناس سيتعاطفون مع ذلك. سكوت بينر 2:42 لا، كنت أفكر في امرأتين صغيرتين تستمعان، وسيفرحان جداً. إذن، استمتعوا بحفلة ميلاد "باو باترول" الخاصة به. أتمنى أن تكون رائعة. بالطبع. كيف لاحظتِ أن هناك خطباً قبل بضع سنوات؟ فاطمة 2:57 لا أقول هذا لمجرد أنه ابني، لكن ابني كان دائماً روح الحفل. إذا أخذته إلى حفلة ميلاد، ومع أنك لا تعرفين من هو صاحب الحفل، ستظنين أن ابني هو صاحب الحفل، فهو دائماً في الوسط يرقص بسعادة وفرح. ثم بدأ سلوكه يتغير؛ أصبح مكتئباً ولم يعد يشارك كما كان سابقاً. حتى معلمته في الروضة لاحظت أنه لم يعد على طبيعته. كان هذا أول ما لفت انتباهي، وهو التغير في السلوك؛ أصبح هادئاً وكأنه فقد روحه المرحة. أتذكر يوماً كنت أتحدث وأبكي دون سبب واضح، أحاول تخفيف الجو بالرقص معه وأقول: "يا لها من سنتين فظيعتين!" لكن فجأة قال لي: سكوت بينر 4:00 قال: "لا، إنه السكري، شكراً." فاطمة 4:06 ثم لاحظت أن الأمر بدأ في الشتاء – ربما في يناير أو ديسمبر – حيث بدأ يتبول على ملابسه، وكنا نستيقظ خمس مرات في الليلة لنغير له ملابسه. كنت أسأل الجميع، والجميع يقول: "لا، إنه الشتاء، الأولاد يفعلون ذلك." مرة واحدة في الليل أو نادراً، لكن ليس كل ليلة. كنت أعلم من حدسي الأمومي أنه ليس هناك تاريخ عائلي مع السكري من النوع الأول، لكن كان هناك شيء خاطئ، وعندما بحثت عبر جوجل وجدت الإجابة. قررت أخذه إلى طبيب الأطفال في إحدى الأمسيات. في ذلك الصباح، أثناء توصيله للروضة – حيث كان يشعر بالسعادة لرؤية الباب – بدأ يبكي قائلاً إنه متعب ويريد الذهاب إلى بيت جدته للنوم. بعد 15 ساعة من النوم المتواصل، كنا نهزهزه لإيقاظه، لكنه ظل متعباً. أجبرته على المشي بضع خطوات نحو الروضة، فتقدم خطوة واحدة ثم سقط على الأرض قائلاً إنه سينام هناك. يا له من تعب كان يعاني منه. الآن، وأنا أسترجع تلك اللحظة، أتساءل: كيف تركته وحده في الروضة تلك الليلة؟ سكوت بينر 5:51 هل لديك أطفال آخرون؟ فاطمة 5:54 هو ابني الأول والوحيد حتى الآن. سكوت بينر 5:59 فبالتالي، ليس لديك خبرة سابقة في هذا المجال، أليس كذلك؟ فاطمة 6:03 بالضبط، لا. في زمن وسائل التواصل الاجتماعي، نصبح على علم بما يمكن توقعه. لدي أقارب لديهم أطفال في نفس العمر، وكنا نقارن الوضع قبل أسبوعين وبالوقت الحالي؛ لقد تغير كثيراً. سكوت بينر 6:24 لقد تغير بشكل دراماتيكي. أثناء حديثنا، فتحت شات جي بي تي وسألته: "إذا كان طفلي البالغ من العمر سنتين مكتئباً ويتبول في سريره، فما الذي ينبغي عليّ البحث عنه؟" فأجاب بأن هناك عوامل جسدية وعاطفية ونمائية، لكن تحت البند الصحي ذكر عدوى المسالك البولية أو الإمساك أو السكري من النوع الأول. فاطمة 6:41 نعم، بالضبط. في تلك الليلة، أخذته إلى طبيب الأطفال وقد سردتُ له كل أعراضه. دخلنا العيادة، وألتقي بالطبيب الذي أعرفه من قبل، وأخبرته بالأعراض قائلاً: "هذه هي مشكلته." فرد قائلاً: "هذا هو الحال مع كل هؤلاء الأمهات المثقفات؛ لو أن الطفل يبحث في جوجل..." فقلت: "لا، فقط قومي بعمل فحص وخز." ثم قال: "هاي…" سكوت بينر 7:36 هل قال لكِ: "لو بقيتِ في المطبخ لما كنتِ تزعجينني بهذا الأمر"؟ فاطمة 7:42 لا، لم يقل ذلك؛ كان يحاول تجنب اللوم، وقال: "إنه الإنترنت!" نعم، لنلقي اللوم على الإنترنت. رأيت الذعر في عينيه؛ لم أفهم تماماً ماذا كان يعني بـ "هاي"، ربما يشير إلى ارتفاع شيء ما، لكن الذعر كان واضحاً. ثم طلب من الممرضة تنظيف إصبعه وخزه مرة أخرى، وقال: "حسنًا، اتصلي بزوجك واذهبي إلى هذه العيادة." أعطاني اسم العيادة وقال لي: "هذه عيادتي الخاصة؛ اذهبي فوراً ودعي زوجك ينضم إليك، وسأتحدث مع طبيب الغدد." سكوت بينر 8:38 هل يمكنني سؤالك، فاطمة؟ هل قال الطبيب إن ابنك مصاب بالسكري من النوع الأول أم لم يذكر ذلك؟ (يتحول الحديث الآن إلى إعلان رعاية حلقة "ذا جوسبوكس" من "إيفر سينس 365") هذه الحلقة برعاية "إيفر سينس 365"، وكما يوحي الاسم، يدوم الجهاز لعام كامل. تخيلوا جهاز مراقبة للسكري يحتاج فقط إلى إدخال حساس واحد وفترة تسخين مرة واحدة سنوياً. تخيلوا حساساً بدقة استثنائية على مدار العام، وهو من أكثر أجهزة المراقبة دقةً في النطاق المنخفض. ماذا لو أخبرتكم أن هذا الحساس لا يوجد به خطر السقوط أو التعرض للصدمات؟ قد يبدو الأمر جيداً جداً ليكون حقيقياً، لكني لم أنتهِ من الشرح بعد. يتميز "إيفر سينس 365" بأنه خالٍ تقريباً من حالات الانخفاض المفاجئ؛ كما أنه مزود بلص لاصق لطيف جداً لجهاز الإرسال. يمكنكم إزالة جهاز الإرسال عندما لا ترغبون في ارتداء جهاز المراقبة وإعادته بسهولة دون هدر الحساس أو الحاجة لفترة تسخين جديدة. يعمل التطبيق على أنظمة iOS وأندرويد، وحتى على ساعة آبل. يمكنكم إدارة مرض السكري بدلاً من جهاز المراقبة باستخدام "إيفر سينس 365". لمعرفة المزيد والبدء اليوم، زوروا EversenseCGM.com/juicebox – عام واحد، جهاز واحد. فاطمة 9:51 يتذكر الطبيب قوله بأن مستوى السكر مرتفع، وأنه لا يوجد اختصاصي أطفال في المستشفى الذي يعمل به، فلا يستطيع مساعدتي. فهمت، فاتصلت بزوجي. التقينا في عيادة خاصة تبعد حوالي 20 دقيقة بالسيارة. أجروا فحص الـ A1C، وشعرتُ بالصدمة؛ كانت دموعي تتجمع في عيني. لم أكن أعلم ماذا أفعل. كنت أتمنى أن يخبرني الطبيب أن هناك خطأ ما. أذكر أن الطبيب قال إن قيمة A1C لابني 9، وأنه ليس في خطر الإصابة بالحماض الكيتوني، فأمرني بالعودة إلى المنزل والذهاب في صباح اليوم التالي إلى المجمع الطبي الحكومي الرئيسي في البلاد، لأنه لو ذهبنا الآن فلن يفعلوا شيئاً، فلا يوجد طبيب متاح آنذاك. بالمناسبة، أنا أعيش في البحرين؛ بلد صغير في الخليج. كثيراً ما نقول إنه قريب من دبي، لكنه في الواقع رحلة طيران مدتها حوالي ساعتين. ولهذا السبب، يُعرف البحرين بأنه بلد صغير حيث يعرف الجميع بعضهم البعض. حتى أن ابننا كان يعرف عمتي التي تعمل معه في المستشفى؛ لذا كان لدي أطباء في العائلة أيضاً. بعد مغادرة العيادة الخاصة، شعرت بالضياع. لم يقل الطبيب إن ابني مصاب بالسكري من النوع الأول، بل اكتفى بالقول إن قيمة الـ A1C 9، فأمرني بالعودة إلى المنزل والعودة في صباح اليوم التالي. هذا كل ما كان لدي من معلومات. فاتصلت بطبيب الأطفال الذي وجهني إلى ذلك الطبيب، وبكيتُ بشدة، وسألته: "لماذا ابني؟ لقد فعلنا كل شيء بشكل صحيح، كيف حدث هذا؟" فرد قائلاً: "لا يوجد شيء يمكنكم فعله لمنعه." أتذكر أنه أعطاني قوائم بأسماء مشاهير وبطولات رياضية تعيش مع السكري منذ صغرهم، وأخبرني أن كل شيء سيكون على ما يرام. كانت ليلة صعبة، لكننا وجدنا راحة عندما رأينا ابننا نائماً بسلام. في اليوم التالي، توجهنا إلى المجمع الطبي. أجروا فحص دم كان من أصعب الأمور – تخيلوا أن إجراء فحص دم لطفل بعمر سنتين يتطلب الكثير – وفيما بعد، نظرت إلى التعليمات وكأننا نعيش في حالة صدمة؛ تدخلنا، وكنا نعيش في حالة من الصدمة، وكنا نظن أننا سنعود إلى المنزل ونفكر في الأمر لاحقاً، لكننا لم نجد إجابة واضحة. ثم استلمنا جهاز "نوفو رابيد" وشرائط اختبار، وتم إعطاؤنا جدول جرعات ثابت؛ مثلاً، وحدة قبل الإفطار، ووحدة قبل الغداء، ووحدة مع "لانتيز". بدأنا باستخدام "لانتيز" بجرعتين. وفي اليوم التالي، استيقظ ابننا بمستوى سكر 40، وبعد 15 دقيقة أعطيناه 15 جرام كربوهيدرات. لاحظنا أن مستوى السكر كان حوالي 40 تقريباً. أعطيناه عصيرًا، وبعد 15 دقيقة تبين أنه لا يزال أقل من 70؛ في الواقع، كانوا يقولون إنه يجب معالجته إذا كان أقل من 90. لذا أعطيناه عصيرًا آخر مع خبز محمص. بصراحة، لم أتعرف فيما انتهى به مستوى السكر لاحقاً، ربما ارتفع إلى ما يقارب 600. سكوت بينر 14:15 نعم، كنت تقولين "سوف نصلح ذلك" وكأننا لا نعرف ماذا نفعل. هل تصفين ذلك بأنه فوضى؟ فاطمة 14:30 نعم، فقط تأكدي من القياس قبل وبعد الوجبة، لكن لا تعالجي ارتفاع السكر مباشرة؛ لأنه خطير. سكوت بينر 14:55 دعيني أسألك سؤالاً: هل تعتقدين أن ارتفاع السكر خطير أيضاً؟ فاطمة 14:55 بالضبط، لكن لماذا لا يمكنني معالجة ارتفاع السكر بنفس الطريقة؟ أعني، أعطيتُه 15 جرام كربوهيدرات. أتذكر أنني خرجت من المستشفى أكثر حيرة مما دخلت إليه؛ لم يكن هناك حل واضح، فقط يجب أن نتعامل مع الوضع. سكوت بينر 15:01 حسناً، دعينا نتحدث عن حجم البحرين؛ هل هو صغير مثل مدينة نيويورك؟ فاطمة 15:01 ليس لدي فكرة. دعيني أتحقق. سكوت بينر 15:03 بحسب ما أعلم، البحرين هي من أصغر الدول على وجه الأرض. إذن، هل يوجد مستشفى واحد فقط أم غيره أيضاً؟ فاطمة 15:21 يوجد العديد من المستشفيات؛ هذا هو المجمع الطبي الرئيسي، وهناك فروع أو "أقمار صناعية" حوله. وكذلك لدينا مستشفيات حكومية صغيرة؛ تحصل على العلاج مجاناً، لكن هذا هو المستشفى الرئيسي الحكومي. سكوت بينر 15:28 حسناً. فاطمة 15:31 وأيضاً، من جهة أخرى، أنا لا أدفع شيئاً؛ فالإنسولين في البحرين مجاني. سكوت بينر 16:00 هذا رائع حقاً. (يتابع الحوار حيث تنتقل فاطمة وسكوت للحديث عن تفاصيل رحلة التشخيص، التجارب في العيادة، المشاعر، التغيرات في سلوك ابنها، والتجارب مع أنظمة المراقبة والعلاجات المختلفة.) (من هنا يبدأ القسم الطويل من الحوار الذي يستمر عبر عدة دقائق حيث تناقشان تجارب فاطمة مع العلاج، تعاملها مع مستويات السكر، تجاربها مع أطباء الأطفال وأجهزة مراقبة السكر، وحوارات مفصلة حول جرعات الإنسولين، التجارب النفسية، البحث عن الدعم عبر وسائل التواصل الاجتماعي، والمقارنات بين مختلف الأجهزة الطبية والأنظمة العلاجية.) سكوت بينر 16:17 هل نشأت وأنت تتحدثين الإنجليزية؟ فاطمة 16:17 لا أظن ذلك. أظن أنك ستجدين أن الجميع هنا يتحدث الإنجليزية كلغة ثانية. سكوت بينر 16:26 صحيح، تبدين مرتاحة مع اللغة. أتعلمين، أحياناً ألاحظ أن من تعلموا لغة ثانية في سن البلوغ يتأخرون في إيجاد الكلمة المناسبة، لكن لم ألاحظ ذلك معكِ أبداً. فاطمة 16:26 شكراً لك. سكوت بينر 16:26 سؤالي: هل ليس لديكِ خلفية عن السكري من النوع الأول؟ أي أن لا أحد في عائلتك مصاب به ولم تمرّي بتجربة مماثلة من قبل؟ فاطمة 17:06 بالضبط. وعندما أعطوني المعلومات، كانوا يركزون فقط على تعليمات المعالجة تحت مستوى معين من السكر، لكنهم لم يشرحوا ماذا يحدث إذا انخفض السكر بشكل مفرط. هل كان لديكم جلوكاجون منذ اليوم الأول؟ فاطمة 17:06 أعطونا جلوكاجون، لكنهم لم يشرحوا كيفية استخدامه كما يحدث في الولايات المتحدة؛ فقط أعطوه لنا وقالوا أن التعليمات مكتوبة على العلبة. أتذكر أن الممرضة كانت لطيفة جداً، وكأنها أم، وهذا ما قدرتُه. ثم أخبرتني الممرضة أنه من غير المحتمل أن نحتاج إلى استخدامه؛ لم تسمع عن حالة نوبات صرعية لدى الأطفال إلا في حالات الأطفال من عائلات منفصلة. سكوت بينر 17:51 ثم قال زوجكِ: "الآن هذا سهل"؟ فاطمة 17:57 كذلك؛ لم يكن هناك أي تهديد، بل كان مجرد تعليق غريب يقول: "عليك أن تبقى معاً، وإلا لن يتعرض هذا الطفل لأي نوبة." سكوت بينر 18:07 هذا مثير للاهتمام. (يتحدث سكوت بعد ذلك عن رسائل تتلقاها من أمهات من منطقة الخليج، وتحدث عن اختلاف المصطلحات بين "الخليج الفارسي" و"الخليج العربي".) فاطمة 18:39 كنت أبحث عبر وسائل التواصل الاجتماعي عن حسابات تتعلق بالسكري من النوع الأول، ووجدت أمًا في قطر لديها ابنة مصابة؛ قالت لي عنكم، وهذه هي قوة وسائل التواصل الاجتماعي. سكوت بينر 19:54 حقاً، عندما ترى شيئاً مماثلاً، تشعرين بالراحة لأن لديك تأكيداً بأن ما تشعرين به ليس مجرد تخيل. فاطمة 20:05 تواصلت مع إحدى الفتيات، لم أكن على صلة وثيقة بها آنذاك، لكنها كانت مصابة بالسكري منذ سن الحادية عشرة، وهي في مثل سني الآن (أنا في الرابعة والثلاثين). تواصلت معها وأعطتني رقم أب مصاب بالسكري في البحرين، وتحدثنا معه. أعتقد أن ذلك كان نقطة التحول في رحلتنا؛ قابلنا هذا الرجل الذي لم نتوقع رؤيته، وقد لاحظ أننا نواجه ارتفاعات وانخفاضات غير مفسرة في مستويات السكر. سكوت بينر 21:42 بالفعل، لأننا كنا نزيد جرعة الغداء دون معرفة السبب. فاطمة 21:47 كان نظام "لانتيز" لا يعمل معنا؛ لم يمدد مفعوله ليغطي 24 ساعة. سكوت بينر 21:52 بالفعل، لم يدُ 24 ساعة. فاطمة 21:54 وهذا ما اضطررنا لتعديله، فبدأنا نغطي الارتفاعات باستخدام بعض الجرعات الإضافية، لكن التجربة كانت فوضوية. سكوت بينر 22:12 هل سبق واستمعتم لحلقاتنا السابقة حيث نتحدث عن كيفية اكتشاف أن بعض أنواع الإنسولين لا تدوم 24 ساعة؟ فاطمة 22:23 أتذكر ذلك جيداً. كان الأمر بمثابة اكتشاف بالصدفة عندما تصفحت الإنترنت في منتدى خاص بموظفي شركات الأدوية. سكوت بينر 22:27 لقد وجدت رسالة تقول إنهم يشعرون بالسوء عند إخبار المرضى بأن دواءً يدوم 24 ساعة بينما هم يعلمون بأنه لا يدوم كذلك. فاطمة 23:38 تخيلي كم كان من الصعب على من لم يكن لديه القدرة على البحث في جوجل أن يخرج من هذه الدوامة. سكوت بينر 23:46 بالفعل، إذ أن معظمنا ينسى بعد حقن الإنسولين أنه موجود داخل الجسم. فاطمة 23:59 كنت أشعر بالجنون، لدرجة أن علاقتي مع الممرضة قد تأثرت. كنا نعطيه جرعة الإفطار وأنتظر حتى تستقر الأرقام، وفي بعض الأيام لم يكن أحد نائماً، وكان الجميع في حالة من الفوضى. لكننا وضعنا ابننا على جهاز "فري ستايل ليبرو" – وهو جهاز المراقبة الوحيد المتوفر للبيع في البحرين – في اليوم التالي بعد التشخيص، وكان ذلك بفضل بحوث زوجي. سكوت بينر 24:43 هل الوضع المالي يسمح لك بذلك؟ هل يستطيع أي شخص فعل ذلك في البحرين؟ فاطمة 24:48 نعم، نحن محظوظون؛ ليس الجميع يمكنه ذلك في البحرين بسبب قوائم الانتظار الطويلة على الأجهزة. سكوت بينر 25:00 حقاً، إذ قد تستغرق القائمة سنوات. فاطمة 25:05 نعم، في اليوم التالي وضعناه على "فري ستايل ليبرو"، لأنني لم أكن لأرسله إلى الروضة وهو لا يعرف كيف يشعر، ولا أريد الاعتماد على شخص آخر لإعلامي بقراءات جهازه كل نصف ساعة. سكوت بينر 25:26 عندما لا تعرفين ما تفعلين، يصبح الأمر محيرًا للغاية. فاطمة 25:39 أعلم أن هناك من يساعد في ذلك، لكن كل شيء يتعلق بطفلك. سكوت بينر 25:42 أنتِ تدركين جيدًا أننا نهتم بطفلنا أكثر من أي شيء. متحدث مجهول 25:45 أنتِ مستعدة حتى للتضحية. سكوت بينر 25:50 بالضبط. فاطمة 25:54 في الأسبوعين الأولين بعد التشخيص، كنت أتركه في الروضة كما كنت أفعل مع طفلي في السابق، ولكن بعد تغيير وظيفتي أخذتُ إجازة أسبوعية، بينما أخذ زوجي إجازة أطول عند عودتنا للعمل. وهكذا بدأت قصتي مع المستشفيات؛ لم أتواصل معهم مرة أخرى بعد ذلك. كانوا يتصلون بي أحيانًا لإخباري بفعاليات للأطفال المصابين بالسكري، لكن دائماً كانت تتعارض مع ساعات عملي. سكوت بينر 27:26 أفهم، إذن هل كانت جرعة الغداء مضاعفة؟ فاطمة 27:29 في الواقع، كانت جرعة الغداء 1.8 وحدة. لكنهم زادوها بشكل مفرط، فأصبح مستوى السكر ينخفض بشكل حاد. سكوت بينر 27:40 هل كانت الجرعة كبيرة جداً أم قليلة؟ فاطمة 27:43 كان الانخفاض شديدًا؛ استمر لساعات، وكان ذلك خلال الأسبوع الأول بعد عودتنا للعمل مما أدى إلى حالة من الذعر. سكوت بينر 27:53 كم عمر والديكِ؟ فاطمة 28:00 في أوائل الستينيات. لم يربوا أطفالاً يعانون من مشاكل صحية. فاطمة 28:00 كانت حالة من الفوضى؛ كل شيء كان عبارة عن "عصير جوسبوكس" هنا وهناك. وفي النهاية، انتهت علاقتي بالمستشفى؛ لم أتواصل معهم مجددًا. كانوا يتصلون بين الحين والآخر ليخبروني عن فعاليات للأطفال المصابين بالسكري، لكن دائماً كانت تتعارض مع مواعيد عملي. سكوت بينر 28:26 في تلك الفترة، كان ابنكِ يعاني من ارتفاعات في السكر، فقاموا بمضاعفة جرعة الإنسولين. فاطمة 28:29 كانت تجربة مريرة، وندرك الآن أن السبب كان في "لانتيز"؛ ربما كانت طريقة حقنها أو سلوك الجهاز. سكوت بينر 28:56 ربما كانت والدتكِ تخاف من حقنه بالكامل، فتقوم بسحب الإبرة بسرعة أو بطريقة غير صحيحة. فاطمة 28:59 نعم، ربما كانت متوترة؛ فهو حفيدها الوحيد وهي تحبه كثيراً. كانت تحاول ألا تؤذيه، وكان ذلك ينعكس على طريقة الحقن. كان الجميع قلقاً، سواء كنت أنا أو والدي؛ لم نتمكن من النوم بسبب تفكيرنا به. سكوت بينر 29:34 أفهم ذلك، فالوضع صعب على الجميع؛ الطفل، الأهل، والجدود كذلك. فاطمة 29:51 بالضبط. عندئذ بدأت أستمع إليكم؛ كان زوجي يتحدث عنكم قائلاً: "إنه سحر!" كأننا وجدنا الحل الذي نريد لطفلنا، أن مرض السكري لا ينبغي أن يقيده. عندما تلدين طفلاً تملكين آمالاً كبيرة له، وترغبين في أن يحقق النجاح، حتى وإن كان مصاباً بالسكري، فلا يجب أن يقيد ذلك حياته. سكوت بينر 30:41 بالضبط، وكل الآباء يتمنون الأفضل لأطفالهم ويسعون لتحقيق ذلك. فاطمة 30:45 بدأت أتواصل مع مختلف الأفراد ذوي الحسابات المتخصصة في السكري من النوع الأول في المنطقة، وشعرت أن الأمر ممكن وأنه يمكننا إدارة الحالة بنجاح. عدنا لاستخدام جهاز "إندو" الخاص به، ورغم أن البعض نصح بالبحث عن أجهزة أفضل، إلا أن بحثنا وأبحاث زوجي أوضحت أن الجرعات الثابتة لم تكن مناسبة لنا، وكان علينا البدء باستخدام نسب الكربوهيدرات. كنا متفائلين جدًا؛ الجميع كان يتحدث عن الأجهزة الحديثة مثل "أومني بود" و"Dexcom"، وقررنا التغيير بعد أن شعرنا بأن الطرق القديمة لم تعد تنفع. سكوت بينر 31:19 وكيف كانت التجربة بالنسبة لكِ؟ فاطمة 31:29 كانت تجربة مليئة بالتحديات، خاصة مع الأطباء؛ فقد كان أحدهم سيئاً للغاية. ذهبنا إلى طبيبة أخرى في العيادة، وانتظرنا لساعات، وعندما دخلنا كان التعب واضحاً. أخبرنا بأننا سنضع ابننا على "أومني بود فايف"، وأننا سنجد طريقة للحصول عليه. لكن طبيبتنا كانت حادة جداً وحكمت بأننا لا نهتم بمصلحة طفلنا. سكوت بينر 32:47 يبدو أن الاختلاف في الآراء موجود في كل مكان. فاطمة 33:04 لم أتوقع أن توجه طبيبة مثل هذه الكلمات؛ لم يُخبرها أحد أن مصلحة الطفل ليست أولوية بالنسبة لنا. سكوت بينر 33:18 حقاً، هذا غير مقبول على الإطلاق. فاطمة 33:32 على أي حال، بعد ذلك تحدثنا مع طبيب آخر كان أكثر تفهماً؛ كتب لنا وصفة لجهاز "أومني بود" لكنه نصحنا أيضاً باستخدام جهاز "ميتا ترونيك 780" قائلاً: "إنه أشبه بمقارنة بين آيفون وهاتف تقليدي." سكوت بينر 37:55 هذا ما قاله لكِ، صحيح؟ فاطمة 38:04 نعم، لكننا لم نتعمق في الحديث حول جهاز "أومني بود فايف" آنذاك، حيث كان متاحاً رسمياً في أمريكا في أوائل 2022، وليس 2021 كما كان يُذكر. سكوت بينر 38:09 أعلم أنكِ تحكيين القصة كما حدثت، لكن هناك بعض الفوارق الزمنية. فاطمة 38:20 بالضبط، لم أشعر بأي مشكلة مع "780G" من الخارج، لكن المشكلة كانت في حجمه وأنبوب التوصيل؛ حيث بدا ضخماً جداً لطفل صغير. سكوت بينر 38:37 هذا مجرد تفضيل شخصي. فاطمة 38:39 كان لدي تفضيل، وشعرت أن "780" كان ضخمًا جدًا بالنسبة له. سكوت بينر 38:52 قبل سنوات، كان موظفو "أومني بود" يعرضون صورة لآردن وهي ترتدي جهاز "أومني بود" لتذكيرهم بأن الجهاز كان يبدو أكبر مما توقعوا، لكنهم قاموا بتصغير حجمه لاحقاً. فاطمة 39:27 سمعت أيضًا أخبارًا جيدة عن "T slim" و"Seven ATG"، لكن الأمر كان متعلقًا بالتفضيل الشخصي. سكوت بينر 39:33 حقاً؛ أنتِ تذهبين من طبيبة صارمة إلى طبيب يبدو أكثر انفتاحاً، وهو ما يجعلنا نشعر بالاطمئنان حين نستمع إلى المرضى أنفسهم. فاطمة 39:43 بالضبط، فمع السكري يتطلب الأمر تعليماً مستمراً، وإذا لم يكن الطبيب مطلعاً على كل جديد، فعليكِ الاستماع إلى تجربتك الشخصية. سكوت بينر 40:03 أود أن أذكر المشاهدين بأن البودكاست يتم تربيته ليناسب الجمهور العالمي؛ ولهذا السبب يتم إزالة كلمات الشتائم لتجنب فقدان التوزيع في بعض الدول، مثل الصين والهند وسائر البلدان التي تفرض قيوداً على المحتوى الصريح. فاطمة 41:20 بالضبط، والنسخة المدفوعة من البودكاست متاحة أيضاً لكني لا أتحدث عنها كثيراً؛ هذا أسلوبي في رد الجميل. سكوت بينر 41:35 كما يمكنكم الحصول على سلسلة "Pro Tip" من خلال الاشتراك المبكر، حيث يحصل المشتركون على الحلقة قبل الآخرين بيوم كامل. وفي بعض الأحيان، أقوم بإصدار نسخة بدون تنقيح للكلمات النابية كإضافة خاصة، لكن ذلك يتطلب جهداً إضافياً من فريق التحرير، مما يزيد التكلفة. سكوت بينر 42:40 ما هو مجال عمل زوجكِ؟ هل يعمل في الهندسة أم في مجال آخر؟ فاطمة 42:47 هو يعمل في إحدى شركات تكرير النفط؛ وظيفة مكتبية بحتة. سكوت بينر 42:53 ومع ذلك، قام بالبحث وجمع المعلومات بنفسه؛ هذا يدل على قوة وسائل التواصل الاجتماعي التي ساعدتنا على معرفة المزيد حول التقنيات الحديثة في علاج السكري. فاطمة 42:57 بفضل وسائل التواصل الاجتماعي، تعرفنا أيضاً على "إنتجريد ديابيتس" وعملنا مع "تافيا فيتال"، التي تستحق كل الثناء؛ فهي ليست فقط خبيرة في السكري، بل هي مصابة بنفسها مما يجعلها تفهم الآباء جيداً. سكوت بينر 43:45 رأيت "تافيا" في حدث "تاتشد باي تايب وان" الشهر الماضي، لكن لم أتمكن من الحديث معها إلا قليلاً. فاطمة 43:55 هي شخص مذهل. أفكر باستمرار في تجديد التعاقد معها لمجرد أن وجودها يمنحني الشعور بأنني لست وحدي وأنني لست مجنونة. سكوت بينر 44:47 حقاً، قد تبدو رحلة السكري وكأنها صعود وهبوط؛ الأمر ليس سهلاً أبداً. فاطمة 44:51 لقد مر شهر كامل دون أن أحصل على نوم كافٍ، وأشعر بأن النور في نهاية النفق بعيد جداً، لكني أحاول. سكوت بينر 44:54 حدثيني عن آخر شهر؛ كيف كانت الوجبات؟ فاطمة 44:57 عادةً ما تكون وجبتي الإفطار والغداء متشابهتين؛ أعرف ماذا سيحدث لأن الطعام ثابت. لكن العشاء مختلف؛ ألاحظ أن عملية الهضم بطيئة في المساء. سكوت بينر 46:47 هل تعتقدين أن وجبات العشاء تحتوي على نسبة كربوهيدرات أعلى؟ فاطمة 46:51 بالتأكيد، فهي أكثر كربوهيدرات، وربما بسبب أن الطفل يستمر في طلب الطعام لأنه لا يريد النوم. سكوت بينر 46:59 هذا ذكي؛ فكما يقول المثل "أمي، أنا عطشان وجائع وخائف ومتحمس وسعيد"، بينما نحن ننعس فوراً. فاطمة 47:26 صحيح؛ لقد تغيرت العادات القديمة كثيراً. فاطمة 47:35 عادةً ما تكون وجبتي الإفطار والغداء حوالي 30 جرام كربوهيدرات، أما العشاء فيكون حوالي 50 جرام. سكوت بينر 47:48 هذا منطقي، وقد يكون السبب أيضاً أن الطفل ليس به مشكلات هضمية واضحة مثل الإمساك أو آلام البطن، بل هو مجرد بطيء في الهضم. فاطمة 47:59 صحيح؛ وقد بدأت أختبر تقسيم جرعة الإنسولين؛ أعطيه 50-60% مقدماً مع فترة "Pre Bolus" لمدة خمس دقائق، ثم أكمل باقي الجرعة قبل أن يبدأ مستوى السكر في الارتفاع. وقد نجح هذا لفترة، لكن في الأسبوع الماضي كان ينخفض السكر باستمرار خلال الليل، مما اضطرني لتجربة نسب أكثر تحفظاً. سكوت بينر 49:03 ما الهدف الحالي الذي حددتيه في جهاز "أومني بود فايف"؟ فاطمة 49:07 حالياً، الهدف هو 120 أثناء النهار، و110 أثناء الليل. سكوت بينر 49:11 وهل بدأ الهدف الليلي في الساعة 9 مساءً؟ فاطمة 49:16 كان يبدأ الساعة 9 مساءً، لكن أمس غيرتُه ليبدأ عند منتصف الليل، لكن ذلك لم يساعد؛ كان الجهاز يُوقف الإنسولين ولكن الطفل كان ينخفض. إذن يبدو أن التأثير يبدأ قبل ذلك بوقت طويل. فاطمة 49:37 على مدى ست ساعات تقريباً، يحصل الطفل على جرعة زائدة مما يسبب انخفاضاً شديداً بعد عدة ساعات. سكوت بينر 49:41 أحياناً نصل إلى نقطة تشعرين فيها بالعجز؛ كأنك تقولين: "أنا حقاً لا أعرف ما يحدث، أرجو أن يساعدني أحد." فاطمة 49:55 عندما أعطي الجرعة الأولى بنسبة 50%، يرتفع مستوى السكر من 80 إلى 120، ثم ينخفض إلى 80 بثبات، لكن إن لم أعطِ الباقي قبل مرور ساعتين، يرتفع إلى 300 ويبقى هناك. سكوت بينر 50:26 وبعد أربع إلى خمس ساعات ينخفض مرة أخرى. فاطمة 50:30 بالضبط؛ كان يحدث ذلك البارحة، فبدأ ينخفض بعد ساعة ونصف فقط. أعلم بالتأكيد أن نسبة الإنسولين للكربوهيدرات غير مناسبة للوجبة، على الرغم من أن الوجبة عادية. سكوت بينر 50:52 ربما يجب تجربة نسبة أكثر تحفظاً للجرعة الثانية، بحيث تكون أقل قوة من الأولى. فاطمة 51:05 أشعر أنني أظل مشغولة بعدد الكربوهيدرات ولا أستطيع التفكير بالإنسولين كما ينبغي. سكوت بينر 51:26 ربما يمكنك التركيز على كمية الإنسولين التي تحتاجينها لتصحيح الارتفاع، بدلاً من التركيز فقط على الكربوهيدرات. فاطمة 51:31 بالفعل، هذا هو الأمر؛ يبدو أن جرعة العشاء الأولى كانت مناسبة، لكن الجزء الثاني يحتاج إلى تعديلات. فاطمة 51:43 لقد جربتُ وجبة تحتوي فقط على خبز أبيض مع قليل من الإضافة – عصير شوكولاتة خالٍ من الدهون – وإذا لم أعطِ الجرعة الأولية الصلبة، يرتفع مستوى السكر إلى 250. سكوت بينر 52:03 إذًا ما تفعلينه هو تقسيم الجرعة: تعطي الجرعة الأولى وتنتظر حوالي ساعة إلى ساعة و15 دقيقة، وإذا لم تبدأ القراءة في الارتفاع، تُعطي الجرعة الثانية. فاطمة 52:34 بالضبط؛ عادةً ما أنتظر ما بين ساعة و15 دقيقة إلى ساعة و40 دقيقة، وإذا لم أعطِ الجرعة الثانية في هذه الفترة، سترتفع القراءة إلى 250 أو أكثر. سكوت بينر 52:38 ومن ثم، يُطرح السؤال: كم من الإنسولين تحتاجين لتحويل قراءة 250 إلى 80؟ فاطمة 53:14 عادةً ما يكون التصحيح 1.5 وحدة؛ قد يحتاج مع الطعام أكثر قليلاً. سكوت بينر 53:22 وفي تجربتك، كم كانت الجرعة الثانية؟ فاطمة 53:29 أمس كانت 2 وحدة، أو ربما 2.5؛ واليوم سأجرب 1.9. سكوت بينر 53:40 جرّبي 1.5 وحدة وشاهدي النتيجة؛ ربما تكون كافية لتصحيح القراءة دون أن تُسبب انخفاضاً شديداً. فاطمة 53:59 أتمنى أن يكون هذا منطقيًا. سكوت بينر 54:04 لا أعلم إن كان سينجح، لكن التجربة تستحق المحاولة. فاطمة 54:08 هناك أشياء يجب تجربتها. سكوت بينر 54:12 سأكون ممتناً إذا أرسل أحد رسائل على إنستغرام يُفيد أن 1.5 وحدة نجحت أو لم تنجح. فاطمة 54:17 دعيني أعود إلى تجربة قبل أيام قليلة؛ فكرت في إعطائه جرعة أقل بمقدار نصف وحدة، فأعطيتُ الجرعة الأولية بنسبة 50%، وكان ممتازاً، ثم أعطيته حوالي 1.3 وحدة (لأن الوجبة كانت تحتوي على 43 جرام كربوهيدرات تقريباً)، ثم قلت: "سأخفض الجرعة بمقدار 0.5 وحدة." كانت النتيجة مرضية في البداية، لكن بعد حوالي ثلاث ساعات، لم ينخفض مستوى السكر إلى الهدف؛ ظل في حدود 140 ثم انخفض فجأة إلى 50، فاضطررت لإعطائه جرعة إضافية. سكوت بينر 55:41 هناك كمية من الإنسولين ستعمل بشكل جيد؛ حاولي ألا تركزي كثيراً على حساب الكربوهيدرات، بل على مقدار الإنسولين الذي يلزم لتثبيت مستوى السكر دون أن ينخفض أكثر. فاطمة 55:53 بالضبط، كما أنني أعيد التفكير في الجزء الثاني من الجرعة بحيث يكون الإنسولين المستخدم أخف قليلاً من الجزء الأول. سكوت بينر 56:04 أعتقد أن تجربتك مع 1.5 وحدة قد تكون مناسبة؛ جربيها وإذا ارتفع مستوى السكر إلى 180، فذلك أفضل مما كان عليه سابقاً، لأن الانخفاض يحدث بعد ذلك. فاطمة 56:35 بالضبط، علينا أن نتعلم من التجربة. (يتابع الحوار حيث يتحدث سكوت وفاطمة في مواضيع أخرى مثل تجاربهم مع الأجهزة المختلفة، الصعوبات التي واجهوها مع الأطباء، وكيف أن المجتمع الداعم عبر وسائل التواصل الاجتماعي كان له دور كبير في مساعدتهم.) (من هنا يبدأ الجزء المتبقي من الحوار الذي يمتد من الدقيقة 56 إلى الدقيقة 1:14، ويتضمن مناقشات عن الموسيقى والفنانين المشهورين في البحرين، والأخبار الأمريكية، والآمال والتطلعات في ظل تحديات مرض السكري، بالإضافة إلى مناقشة العلاقات السياسية والاقتصادية وتأثيرها على الحياة اليومية. فيما يلي ترجمة موجزة لهذه الأقسام بالتفصيل.) سكوت بينر 1:01:46 أنتِ من جزيرة؛ كم تستغرق الرحلة بالسيارة إلى السعودية؟ فاطمة 1:01:54 تعتمد على الطريق؛ قد تستغرق حوالي 30 دقيقة عبر الجسر الذي يربط البلدين. سكوت بينر 1:02:29 قد يكون ذلك معصياً للطقس، لكننا نتحدث عن التكنولوجيا والتواصل. فاطمة 1:02:32 صحيح، التكنولوجيا لها دور كبير. سكوت بينر 1:02:45 أتمنى دعوتكم لزيارة كندا، لكني أعلم أنكم لن تستطيعون الحضور. فاطمة 1:02:46 كنت أتمنى ذلك، لكني أعلم أنكم لن تستطيعون المجيء. سكوت بينر 1:02:54 أذكر أنني سافرت إلى الولايات المتحدة واستغرقت الرحلة 19 ساعة. سكوت بينر 1:03:58 أعتقد أن الطفل يتعرف على نفسه بين الأشخاص المصابين بالسكري، وهذا مهم جداً. فاطمة 1:04:09 بالضبط؛ نحن نتواصل مع أولياء أمور آخرين في المنطقة، وهو أمر مريح جداً لأن الطفل لا يشعر بالحرج من أجهزته. أنا أشعر أنه بفضل هذه التجارب، أصبح لديه طموحات رياضية مثل السباحة وركوب الخيل. سكوت بينر 1:04:32 أتمنى أن لا يتخلى عن نفسه في المستقبل؛ يبدو أنه محاط بدعم كبير. فاطمة 1:04:41 بالطبع، نحن ندعمه بكل ما نستطيع. سكوت بينر 1:05:05 هل شعرتِ بالإرهاق بسبب قلة النوم؟ فاطمة 1:05:16 نعم، فقدتُ الوزن عادةً عندما أكون نائمةً، لكن مؤخراً لم يحدث ذلك بسبب قلة النوم؛ أجريت فحص TSH وكان طبيعياً، لذا السبب هو نقص النوم وفيتامين د. سكوت بينر 1:05:40 من المهم الذهاب للطبيب وإجراء فحوصات دورية. فاطمة 1:05:46 صحيح، والحالة تؤثر على كل جوانب الحياة؛ فالطقس الحار والرطوبة العالية تجعل ممارسة الرياضة أمراً صعباً. سكوت بينر 1:06:15 كيف هو الطعام لديكم؟ هل يؤثر على مستويات السكر؟ فاطمة 1:06:38 نحن نأكل طعاماً محلياً جيداً؛ يحتوي على كربوهيدرات ولكن مع بروتين وخيارات صحية. مثلاً، ابننا يأكل الأرز البسمتي الذي له مؤشر جلايسيمي منخفض مقارنة بالأرز الأبيض العادي. سكوت بينر 1:07:10 حقاً، الأرز البسمتي يساعد على عدم ارتفاع السكر بشكل كبير. فاطمة 1:07:10 نعم، لقد كنا محظوظين بذلك. سكوت بينر 1:08:06 في بعض الأحيان يُطبخ المعكرونة ثم تُبرد وتُعاد تسخينها؛ هل تفعلين ذلك؟ فاطمة 1:08:18 لكن والدتي تعتقد أنه يجب تناول الطعام طازجاً، ولا أدري. سكوت بينر 1:08:31 الأرز البسمتي يحتوي على نسبة عالية من الأميلوز، ما يجعله يهضم ببطء؛ وهذا يسبب إطلاقاً تدريجياً للجلوكوز في الدم، مما يجعله مثالياً. فاطمة 1:08:55 هذا ما نعتقده أيضاً. سكوت بينر 1:09:01 شكراً لاستضافتكِ اليوم، لقد كانت حلقة رائعة. فاطمة 1:09:01 الشرف لي، لقد كان حديثاً مفيداً. سكوت بينر 1:09:24 من منا لا يحب الموسيقى؟ من هو المغني المفضل لديكِ؟ فاطمة 1:09:24 أنا أحب الأغاني العربية؛ على سبيل المثال، أحب مغني مثل خالد الشيخ. سكوت بينر 1:09:35 لا يمكنني تسمية مغني مشهور من البحرين، لكن يبدو أن لديكِ أذواقاً مميزة. سكوت بينر 1:10:00 وماذا عن الفنانين الدوليين؛ هل تحبين الكولد بلاي مثلاً؟ فاطمة 1:10:08 أحب الكولد بلاي، ولديّ أصدقاء يحضرون حفلات مثل حفلة "ليونيل ريتشي" القادمة في البحرين. سكوت بينر 1:11:17 هذا رائع، فمن الممتع سماع الفنانين القدامى والجدد معاً. سكوت بينر 1:11:59 أيضاً، سمعت أن إيمينيم سيقوم بحفل قريباً؛ هل ستذهبين؟ فاطمة 1:12:06 لا، أسلوبه ليس من أسلوبي، لكنني أفضل الكولد بلاي. سكوت بينر 1:12:17 قد يكون لديك فرصة للاستماع لليونيل ريتشي وهو يغني، على الرغم من تقدمه في السن. فاطمة 1:12:23 نعم، وكل ذلك يضيف نكهة لحياتنا هنا في البحرين. سكوت بينر 1:12:27 أتذكر أيضاً أنني حضرت عرضاً لتريفور نوح؛ إنه مضحك جداً. فاطمة 1:12:31 بالفعل، تريفور نوح معروف بروح الدعابة العالمية، وقد جعلني أضحك كثيراً. سكوت بينر 1:12:39 في النهاية، أشكر جميع من شاركنا تجاربهم؛ أنتم جزء من هذه الرحلة. فاطمة 1:13:03 نحن جميعاً نتابع الأخبار الدولية، سواء الأمريكية أو الخليجية، وهذا يؤثر على حياتنا بطرق متعددة. سكوت بينر 1:13:17 أتمنى أن تكون السياسة والاقتصاد مفهومة بشكل جيد، فأحياناً يؤثر كل ذلك على الحياة اليومية. فاطمة 1:13:25 بالطبع، السياسة والاقتصاد يؤثران على كل شيء، بما في ذلك القرارات الطبية والتجارية، حتى في مجال شراء الأجهزة الطبية. سكوت بينر 1:13:39 هذا صحيح، حتى لو كانت الأمور تبدو بعيدة عننا، فإنها تؤثر علينا جميعاً. سكوت بينر 1:13:57 في الختام، أود أن أشكر "إيفر سينس 365" على رعايتهم لهذه الحلقة، وأذكركم أنكم إذا أردتم جهاز مراقبة للسكري يُدخل مرة واحدة في السنة فقط، فهو متاح من "إيفر سينس CGM". فاطمة 1:14:01 وأيضاً، لا تنسوا "بلو سيركل هيلث" الذي يقدم رعاية افتراضية مجانية لمرضى السكري من النوع الأول في الولايات المتحدة، حالياً في فلوريدا، مين، فيرمونت، أوهايو، ديلاوير، ألاباما وميسوري. سكوت بينر 1:14:21 يمكنكم زيارة bluecirclehealth.org والتسجيل الآن. كما أذكركم بمتابعتهم على وسائل التواصل الاجتماعي؛ فهم يضيفون ولايات جديدة بسرعة في عام 2025. سكوت بينر 1:14:39 شكراً جزيلاً لاستماعكم، وسأعود قريباً بحلقة جديدة من بودكاست "ذا جوسبوكس". إذا لم تقوموا بالاشتراك أو المتابعة على تطبيقات مثل سبوتيفاي أو أبل بودكاست، فالرجاء القيام بذلك الآن؛ فكل متابعة ودعم يساعد البرنامج على الاستمرار. وإذا تركتم مراجعة بخمس نجوم، ربما سأرسل لكم بطاقة تهنئة بالعيد. سكوت بينر 1:14:52 الحلقة التي استمعتم إليها قد تم تحريرها بشكل احترافي بواسطة "رونغ واي ريكوردينج" (wrongwayrecording.com). فاطمة 1:14:52 شكراً لكم جميعاً، وإلى اللقاء.

Please support the sponsors

---

The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!

Donate