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Podcast Episodes

The Juicebox Podcast is from the writer of the popular diabetes parenting blog Arden's Day and the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad'. Hosted by Scott Benner, the show features intimate conversations of living and parenting with type I diabetes.

Filtering by Category: Algorithm Pumping

#951 Suck it Out of My Thumb

Scott Benner

Shirley has type 1 diabetes and the Medtronic 780G

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome to episode 951 of the Juicebox Podcast.

Today I have a return guest surely is back from Episode 414 Durbin Shirley. As you may have heard with the Durbin surely is from South Africa. And she's on today to say hello and talk a little bit about her Medtronic 780 G. While you're listening today, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin. Want to save 35% off all your comfortables your towels, sheets and clothes you can at cozy earth.com When you use the offer code juice box at checkout. If you're going to check out ag one, use my link drink ag one.com forward slash juice box if you'd like to save 10% off your first month of therapy. Go to better help.com forward slash juicebox with my link, you will save 10% off your first month. All right, everybody Shirley's got a cool next and get excited this episode of The Juicebox Podcast is sponsored by Dexcom, makers of the Dexcom G six and brand new Dexcom G seven continuous glucose monitoring systems, learn more and get started today@dexcom.com forward slash Juicebox Podcast is also sponsored by Omni pod. Now you know Omni pod has the Omni pod dash and the algorithm driven Omni pod five, learn more again and get started today at Omni pod.com forward slash juicebox.

Shirley 2:09
So hi, my name is Shirley. I am from South Africa. I'm a type one diabetic. I've been diabetic for 19 years.

Scott Benner 2:17
19 years. How would you say were?

Shirley 2:21
How old am I? I'm 39.

Scott Benner 2:23
Oh, you didn't say how old you are? Trying to get away with that. Did you surely?

Shirley 2:28
No, no, no.

Scott Benner 2:31
39 is a good age.

Shirley 2:34
Getting there getting a bit older

Scott Benner 2:36
is getting where it's getting too good. Or it's getting the

Shirley 2:40
Oh, it's just getting too older.

Scott Benner 2:44
Weather your knees start to hurt. That's a fun one. For your shoulders. You're like why don't my shoulders ache? That's ridiculous. And you realize your body wasn't meant to live this long. And you're like, Oh God, I'm gonna have to get like a knee replacement or something.

Shirley 2:57
Yeah, getting to where you can't get out of bed easily anymore.

Scott Benner 3:01
Yeah. And you don't see any reason to go like, you know, I've done everything. There's nothing left. What am I going to do? The thing I did yesterday? Didn't already. I'll stay here. Anyway, so you've had diabetes for 20 years. And you live in South Africa? Interesting. Yes. Do you've been listening to the podcast for a while? Haven't you?

Shirley 3:22
I have Yes, I have.

Scott Benner 3:23
How long do you think?

Shirley 3:26
Um, probably a couple of years. I mean, I don't know. Exactly. Couple of years.

Scott Benner 3:32
Okay, look at you. You're like if I measure the time, I'll know how old I am Scott, so I can't do that. Well, what was it like being diagnosed? That? Who? 19 That seems like your crap.

Shirley 3:47
No, I was 20. I was 20 already. Okay.

Scott Benner 3:51
In university. Yes. Were you literally there when you were when you figured it out? Or were you home? How'd it go?

Shirley 3:59
I was there but I was only I mean, I went to university, like about an hour away from home. So it wasn't far. Yeah. I don't know. I kind of walked around for about two weeks before I went to a doctor to figure out what was going on. But it just had like all the classic symptoms this tiredness, blurry vision, I stopped going to lectures because I couldn't see anything. Yeah. And then I went to the doctor was very straightforward and simple data, my blood sugar, said I had diabetes. I was admitted. I think for about a week, maybe less. I can't actually even remember. And then I carried on with my life.

Scott Benner 4:46
What in those first couple of weeks for all these things were going on? Can you just give me if you can remember. It's been such a long time ago. Surely, if you can, you can remember what I mean those are You listed a number Things that would send me to the doctor. But why does it take two weeks?

Shirley 5:04
I don't know, I suppose. Lucky young. And I don't said they had no reason to think I was had diabetes. Yeah, like that didn't cross my mind at all. And then eventually, yes, my mom did come to fetch me. I said I needed to go to the doctor. So she came and actually fetched me. And y'all, we went to the doctor, our usual lack of what we call our GPS or general practitioner. So he had been our family doctor for many years. And he did a finger prick immediately. And yeah, it was straightforward. You have type one diabetes, there wasn't any lack of listen to a lot of people that have like a misdiagnosis or something like that. But it was a pretty straightforward, easy cut and dry. Yeah, type one diabetes diagnosis,

Scott Benner 5:58
I must be a baby. I'll tell you I looked up at the sky one day saw some like floaters in my vision. I was at the doctor. Four hours later.

Shirley 6:08
I just thought I needed glasses.

Scott Benner 6:14
My knee hurt. And I tried my best for two weeks to rehab it. And when it didn't get better, I went right to a surgeon and got it fixed.

Shirley 6:23
Thank god like also to be honest, the increased thirst started like after being out for like, going out with my friends and drinking. So I thought I had a hangover. I say you were the very first when I first got the increase, like thirst I didn't really like. Yeah. But also no reason to think I would have had diabetes as well. So no,

Scott Benner 6:50
of course not. But is the detail that's missing in this story that you were drunk for those two weeks?

Shirley 6:55
Not the entire two weeks before the first started.

Scott Benner 7:03
Gotcha. All right. So I mean, you sound pretty. I don't know relaxed about it, I guess. So you just head back to school and begin but 20 years ago, what did that mean? You were shooting twice a day?

Shirley 7:18
No, I had Lantus and Nova rapid Oh, wow. Cool. Humalog whichever one I had, I can't remember. And a glucometer. And that was it. Were you. Go ahead. Sorry.

Scott Benner 7:34
Were you counting carbs?

Shirley 7:37
Yes, so I'm actually a dietician by profession. And I was in my second year, becoming a dietitian. So I had some knowledge. Not all

Scott Benner 7:51
of that knowledge helped you and you were drinking directly from a keg surely.

Shirley 7:56
That was before my diagnosis changed. I changed. I stop drinking. Well, did you? Pretty much. Well, I didn't drink in any great amount after that. No. You know, I'm very responsible.

Scott Benner 8:11
Have you always been? I think so. Yeah. Do you know Arden is now a college like maybe five weeks now? Right. I

Shirley 8:19
listened to it. Oh, before she lost? Yeah.

Scott Benner 8:24
But so if the boys are starting their swarming, you know what I mean? And, and she's, like, knocking them back mostly. But she she texts, she texts me one day, and she says, this boy, came up to me in class. And, you know, I didn't know what he wanted at first. And I realized, you know, he was hitting on me. And then he asked to walk me back to my dorm. And I said, No, thank you. And then he said, Well, we're in the same dorm. So I'm just going to walk with you. And she's like, you really don't need to. And then he did. And, you know, in the course of the walk, he offered her drugs to that as as an enticement to date, though, do you know what I mean? Like, like, imagine if a man came up to you and said, Surely Will you marry me? I have a home and you'd think, oh, okay, well, I might have a home then if I married this man, if I don't have my own home. He was like, Well, you go out with me. I have acid.

Shirley 9:21
That's not a good idea.

Scott Benner 9:23
Come on. First of all, Ethan, your boys don't know what they're doing.

Shirley 9:28
But But I would stay away from that. Let me

Scott Benner 9:30
let me tell you, I told you the story. Because she says to me, I don't need that problem. I have enough trouble with my health. And I don't want to drop dead because I don't know what I'm doing. And I realized, I don't know if Arden doesn't want to do drugs or she doesn't want her blood sugar to get low. I can't tell the difference. But you know, but she was just like, she was like that was She's responsible. She is but how does that even happen? I don't know. But

Shirley 9:57
like diabetes for a long time. So I say Think back as much as parents do stuff with children diabetes, that you do have a sense of responsibility that other people don't. Right. No, it's

Scott Benner 10:08
interesting. Yeah. Yeah. I mean, listen, without the diabetes. She still thought it was a weird.

Shirley 10:14
Come on don't yeah, that was a weird. Yeah.

Scott Benner 10:17
Let me tell you the rest of it. He waits like a week and tries again. And she says, You know, I'm still not interested, but thank you. And he goes, I guess I'm gonna have to get used to or it goes, I think I'm gonna have to lower my expectations. And she goes, Yeah, that'd be a good idea. So, anyway, anyway, so you're back at school, but you're in your nutrition mind now. And you take things. Seriously, it sounds like so management back then. No CGM, obviously, do you know how it was going? Do you remember a one CS at the time?

Give me a moment of your attention and then I'll get you right back to surely Dexcom makes a continuous glucose monitor. Do you know what that is? It's a device you were that can tell the speed, direction and number of your blood sugar. So if for instance, while I open my phone, and I'll look at Arden's blood sugar on her Dexcom it is actually two o'clock in the morning right now because I procrastinated today and Arden's blood sugar is 98 it is stable, it is neither rising or falling. I see that on my iPhone, the number, the arrow, which tells me she's stable. It's beautiful. Do you understand what I'm saying? Do you? Where is art right now? In our bed, I think, but I still can see your blood sugar. I'm not in a room. I'm not calling her on the phone. Because you can share blood sugars with up to 10 followers with a Dexcom dexcom.com forward slash juice box. You can also set alerts for instance, Arden's low alarm is set at 70. Her high alarm is set at 120 that's on my phone, on her phone. Her low alarm is set at 70. Her high alarm is set at 130 little beep when you hit that number, he gets to that threshold and let you know oh gosh, I'm going up or I'm going down. How does it do that? The beeps have different tones. You'll learn them. b b, high B BB low. How do you know that? I know that because I've been using Dexcom along with my daughter for so many years. And I really think you would love it. Dex comm.com forward slash juice box links the shownotes links at juicebox podcast.com to Dexcom. And my next sponsor, Omni pod Omni pod.com forward slash juice box. You get two great options with Omni pod. You want to kind of go old school, get the Omni pod dash put in your settings, you make all your decisions. Or check out the new Omni pod five. It's an algorithm. It works with the Dexcom G six right now. And it's terrific. You put in your settings, but then you start telling it hey look, this is how many carbs I'm having it says this is how much insulin I think you should have. And it just kind of does it. It's redonkulous. And then if later it thinks you need more insulin, it gives you more if it thinks she needs less, it takes it away and tries to stop low blood sugars. Omni pod five is absolutely terrific. Whether you want the Omni pod dash or the Omni pod five, my link is the way to go. Omni pod.com forward slash juice box you're going to learn everything you need to know there. You can get started, ask for I think you can ask for something. There's is a bunch of stuff you can do on there. Just go check it out. It's fantastic. Absolutely fantastic website. You're gonna see my face when you first log on. Just ignore that. Don't let it scare you scroll right down and get to that good honoree pod information. Once again, when you use my links, you're supporting the show and helping to keep it free and plentiful. And I really appreciate that. Omni pod.com forward slash juice box dexcom.com forward slash juice box Use the links support the show. Let's get back to surely I eventually am going to ask her about sharks. And at some point I'll explain this stupid title this episode

Shirley 14:28
I think in the beginning, like pretty good in the sixes I mean, I suppose I don't know maybe I did have a bit of like a honeymoon phase. Um, I think the highest HBA ones see since diagnosis has been about 9% around 9%. Okay, and that was before I went on to a pump.

Scott Benner 14:50
How long were you injecting?

Shirley 14:54
Um, I'm trying to think because I've been on a pump for 11 yours now so on Yes, I just Yeah.

Scott Benner 15:05
fair amount of time. And yeah. What were pumps not available? Were you just not interested?

Shirley 15:13
I'm thinking the beginning they weren't available or if they were not very easily or they still not very easily available here. But not something that was really maybe promoted much. And then for a little while, I didn't want to pump. And then I changed my mind. And I got one. Yeah.

Scott Benner 15:35
Okay. And not want one because of it being stuck? Or that kind of thing? Oh, maybe

Shirley 15:42
I think this is just maybe just the unknown. It's not something you used to. So yeah,

Scott Benner 15:48
I think you I don't know, maybe a couple 100 People might be lifting in Africa. But that's about it. There's not South Africa, excuse me, there's just not a ton of listens down there. But there's a lot more than I thought there would be. So I

Shirley 16:04
think there are a few people I know if one or two people that listen. Yeah, that's interesting. Do you tell people to listen? Do you think? Yeah,

Scott Benner 16:12
do you think that? Will your let's say based on your diabetes and your background, like your professional background? We have every I don't know, 10 people you approached and say, Hey, this is a way to help yourself, blah, blah, how many of them? Do you think actually? Or like, leave me alone? And how many of you think get interested in go try?

Shirley 16:35
What to listen to the podcast,

Scott Benner 16:36
not even the podcast, just the idea like bettering themselves. I've

Shirley 16:40
just it's so I mean, we have like a, like a different sort of, I don't know, what would I call it like setting. So like, I work in a public health setting. So government funded setting government hospitals, where they barely have access to anything. So it's very difficult for me to give the knowledge I have and for people to use it effectively. Because they don't have a lot of access, they only have access to the, like, the mph and the older insulin, so like, you know, what, what would you call them? Like you're human, aren't in etc. And if they get test trips, it's 50 a month. So yeah. So it's very difficult for them. And then also, you're dealing with a much lower socioeconomic status. Yeah. And also education levels, etc. Can be lower, just depending where you are. So yeah, it's sometimes I think the information I give him a professional setting is very basic, and just trying to get people the basic knowledge that's needed.

Scott Benner 17:55
Right. So the goals are different because of the scenario. Yes. Yeah. Sure. How long has it been since you were on the podcast? Couple years? Yeah, thanks. Yeah. I'm gonna figure out what episode you were on and tell people before because we talked about this a lot more and

Shirley 18:10
yeah. So yeah, it's just different settings sort of thing. So

Scott Benner 18:14
you're here today to talk about on the pod five, right?

Shirley 18:18
No, no, no, we don't have Omnipod. So the the Medtronic, seven ATG. Oh, my God, I'm looking at the wrong not available.

Scott Benner 18:28
Sorry. I'm looking at my wrong notes. I'm like, how is she getting on the pod five. And then I realized that was on yesterday's notes. Sorry.

Shirley 18:36
No, no, no. We don't have Omnipod at all here. That's not an option for us.

Scott Benner 18:41
So you're using Okay, Jenny and I just talked about this the other day. Sorry for that was fine. Medtronic seven. ATG? Yes. That's the newest algorithm pump from Medtronic. Right. And it's already available. Overseas from the US, right. It's not available in the US yet, I think.

Shirley 18:59
No, no, no. Okay. So it's available in Europe, UK, and we have it I don't know what your other countries

Scott Benner 19:05
Gotcha. Okay. So how long have you been wearing it for?

Shirley 19:09
I have had it for about 18 months now. Okay, great.

Scott Benner 19:12
That sounds good. Long time for us to talk about before that. Did you have the seven seven Digi?

Shirley 19:18
No. So before that, I had an accucheck pump which was just a pump not algorithm based. Nothing, right. didn't connect to a sensor or anything.

Scott Benner 19:28
So this is your first your first algorithm. Yes, Shirley's first algorithm.

Shirley 19:34
First algorithm.

Scott Benner 19:36
I'm just saying it's possible that we're going to name the episode that and so, alright, so you're using if you're using the seven ATG, then you're also using their CGM, right? Yes. What is that called?

Shirley 19:48
I am using the Medtronic Guardian three guardian. Yeah, Guardian three. There is a guardian for but I don't use it. for

Scott Benner 20:01
religious reasons rarely or what why

Shirley 20:04
I had to travel with it, it just did not work very well for me. Oh, just my personal experience with it was not very good.

Scott Benner 20:12
Well, we're just, we're just looking for your personal experience. So the Guardian three is working well for you. And by working well for you, you mean, it's giving you results that match your finger sticks and things like that?

Shirley 20:25
Yeah, I'd say most of the time. I mean, there are times when it's a bit off, but, I mean, it's they are sensors, they're not always 100% accurate. Or the, you know, there's the whole debate on that. But yes, most of the time, I get pretty, like good readings with it. Okay,

Scott Benner 20:43
and it speaks to your pump piece. And what is the Do you know, I guess for for just for context, I guess I'm the Pudge target range is as low as 110. Tandem control IQs 112 and a half, do you know what the one with the target is for the seven ATG?

Shirley 21:04
So the seven he is the lowest is 5.5. So sorry, I'm in millimoles. It's 5.5. Or you can do a 6.1 or a 6.7. Okay, hold on. I think that's lower than Omnipod. Five, I think it's 100. I don't know.

Scott Benner 21:21
Five point. I have a little calculator here on my website. 5.5 is like 99 100. Yeah. Okay. So that's the lowest that will target. Yes. Does it have any luck keeping you there?

Shirley 21:36
Obviously, it doesn't keep you there throughout the day, right.

Scott Benner 21:40
That's what it's targeting. But I mean, most of the time, do you feel like you're? You don't I mean, do you feel like it's working? Yes.

Shirley 21:46
Or like I think LACMA. So I mean, it works. Obviously, time and range, it just works on the international consensus of the fingers that 3.9 to 10. I spin. If I look at like my 14 day average, I'm always above 80%. Time and range.

Scott Benner 22:04
Well, what's your range you're shooting for?

Shirley 22:07
So I've been I don't change it. So the algorithm and it, it looks at the range of 3.9 to 10. millimoles. Between that, yeah. Alright, so between that I'm sitting above 80%. Time and range. Yeah.

Scott Benner 22:23
So 70 and one ad, it's what it's shooting for people who are listening to the millimoles and are like, I don't know what she's Yes. Or for the people overseas for like, Finally, somebody speaking in Milan. Which I get a lot about people like, can you translate them on the fly every time people say a number? And I'm like, No, I can't imagine if the whole conversation was just me going. Okay. No, wait, no, you said 68. Hold on a second that it was like, I appreciate that. That's what people would like, but I can't do that. But for this, I wanted to make sure we understood. Okay, so you're staying in that range? 80% of the time.

Shirley 22:58
Yeah, but 80% How about loads and cups? Knows what what range I've set up? Or like, how often am I low?

Scott Benner 23:07
How often are you low?

Shirley 23:09
I'm authentic about any loads today? That counts.

Scott Benner 23:18
There's someone who's had diabetes for a long time. So far today, it's been fine.

Shirley 23:24
I'll have a look at my average cookie. So my seven day average, I had 2% lows. That's terrific.

Scott Benner 23:35
All right. Yeah. Yeah, really? Well, it's wonderful. And this is I'm pulling up a picture of it. Right now. Okay, so this is the tube pump. It's kind of small. It's reminiscent of a lot of older pumps. As far as the size. You got a screen on the front. The CGM is on the screen of the pump. I imagine.

Shirley 23:56
The dots uh, yeah, yeah. And then there is an app for your phone that like, it's the app. Currently, it's not very functional. Just, it's like a mirror of the screen. So you can bring up your readings onto your phone instead of taking your pump out.

Scott Benner 24:14
So you can kind of look at what's going on in the phone. But you can't make any changes. There's no phone control at this point.

Shirley 24:20
No, not at this point. All right.

Scott Benner 24:25
You like it?

Shirley 24:27
Yeah, I'm like, I'm quite happy with it. I think it's going pretty well. I mean, obviously, there's always things that you think could be better or could be changed. I'd really like phone control. I'd like to be able to Bolus from my phone. But that's not there yet. So

Scott Benner 24:45
that yeah, that was the driving factor in Arden asking me to go back from Omnipod five to loop. Oh, really? She's like, I don't want to carry color and I want to use my phone and I was like, okay, yeah. It was a big deal to her. Actually, and they are

Shirley 25:02
that is like, really something that I wish they would bring out.

Scott Benner 25:06
Yeah, no kidding. How was it? Like not speaking about the not speaking specifically about this pump, but about algorithms in general? What was it like adjusting from a regular pump to this? Like, where did you find yourself tripping up? And what did you like immediately.

Shirley 25:26
Um, I don't think I had like a huge adjustment. So when you start the pump, it's like a similar, I listened to your Omnipod, five episodes, it's pretty similar. So you wear it in what they call manual mode for 48 hours. And it I don't know, collects its data. And then after 48 hours auto switch into what they call smart guard, which is the algorithm based mode, it switches into that. I didn't have a lot of changes. I know when I set it up, they said my carb ratios might need to be changed. But I haven't felt like I've needed to change my carb ratios. And I think, yeah, I think my settings were fine. And then once it's in the smart God or the algorithm, it controls your basil. So you don't have any input into that. It learns you over time and does the basil. And then it does auto corrections as well. So when it's does auto corrections automatically, so I don't have to use the pump or anything. It automatically will correct when it feels it needs to. So I don't feel like I've had to do much. Went out since I switched over.

Scott Benner 26:45
We did autocorrect is it moving up basil? Is it making a Bolus? How does it handle that?

Shirley 26:51
It makes a Bolus. Okay, so, I mean, they're generally pretty tiny. boluses to like, point two point 3.5. Yeah, just depends. But yeah, it it's made, but there's like a little Bolus

Scott Benner 27:07
RT in sec right now. And we've kind of cranked up the loop, you know, and, you know, told it to work at a higher percentage, like basically just told the whole, you just override it and say, Look, do everything at 140% of how you usually do it. But it's still like, you can see it weights work in a TAS off trying to hold her blood sugar down because she's sick and has her period at the same time. And so yeah, it's just auto Bolus. And these little Bolus is like every five minutes like, here's a little more, here's a little more, here's little, it just keeps happening. It's fantastic to watch. Because you realize that without this thing,

Shirley 27:43
you'd be watching it doing that, yeah,

Scott Benner 27:45
your blood sugar would be going up. And then you'd be like, oh, yeah, all right. And you try it again. And you know, it just, you know, where you'd be without it. So the reason I asked about your transition, is because many people will fight the algorithms in the beginning, like their experience. You know, managing insulin manually, doesn't mimic what they see the algorithm doing. And they they have a hard time just letting it do it. And I doesn't sound like you have that problem,

Shirley 28:15
though. Yeah, like, I think I had to have that mindset though. The when I started using it that I had to like just when I started it, just let it do what it needed to do, and not interfere with it. But I can see why. Yeah, I understand why people will do want to interfere with it, because you do things in a certain way. When you manage manually. Yeah. So I do understand why people do want to like, interfere and adjust things and change things and all the rest. But I think if you're going to use an algorithm or pump with an algorithm, whichever one you use, I think you do have to just like let it do its thing as much as possible.

Scott Benner 29:01
Do you have access to what it's doing? Can you like visually Have you seen people using loop for instance?

Shirley 29:09
Y'all have kind of seen people using loop I haven't really gotten much into it, but I've seen on I've seen it a little bit so like What do you mean in terms of access of what it's doing? Like what

Scott Benner 29:18
yeah, like being able to see the Bolus is and where it takes away bays Lord gives extra basil. Do you like visually see that?

Shirley 29:25
Yeah, so it's on the screen. So like whether I look at my phone screen on the app or the pump, so it has it basically just has like purple lines, which are the Basal insulin so you can see where it stopped Basal etc. And then it'll have like little blue lines, which are the auto Bolus as it gives when it feels it's necessary. Gotcha. So you can see, I mean, you can't see you can see what the auto Bolus was like, how many units the Basal you can't see how much it's giving. Okay, I guess Tom,

Scott Benner 30:00
I find it so valuable to watch it happen. That's why I was wondering. And

Shirley 30:06
yeah, it is. It's very relaxed, interesting. Like, you'll see like, for a whole hour or so it doesn't get any basil. And you just sort of fun. Yeah, just carries on.

Scott Benner 30:17
Yeah, yeah, no, it's like, you can see like, on for loop, for example, like you, it's like if you're going to be low, and we're going to try to stop this. And, you know, I kind of, I kind of go back and forth between the apps and I look at the Dexcom line, I'll text art, and I'll be like, Look, the algorithms trying to stop below like an hour from now, it looks like it's gonna get it, or it doesn't look like it's gonna get it. And then, you know, like, 15 minutes before it's gonna go bad. If it's going to go bad. I'll text her and be like, Hey, this isn't like, look at this line. Like, really look at this. This isn't stopping. Like, if you put some carbs in here, you're gonna, it'll be like throwing a parachute on the fall, and you'll be able to bring it in. And it's just so it's so incredibly valuable to be able.

Shirley 31:02
It's very interesting to like, see how it. Yeah, takes away and gives and yeah.

Scott Benner 31:08
So the reason and the initial reason I asked about Liz, because oftentimes, it freaks people out when they put a Bolus in for a meal. And then they see the algorithm take the basil away. Yeah. And then that either works or doesn't work. But I'm imagining, tell me if I'm wrong. Based on your, your background, you probably eat fairly well, right? Like, reasonably clean, you're probably not eating a ton of carbs or processed food. am I guessing, right?

Shirley 31:39
You're like, I mean, I don't I don't eat a lot of processed food. I do eat carbs. But like, I suppose it's other forms of carbs. So if reasonably well, the days that I do eat other things that aren't great, but most of the time, I'm eating pretty well. Do you

Scott Benner 31:57
see that difference? Like a Bolus that doesn't spike is more attached to cleaner food than a Bolus that does end up spiking?

Shirley 32:06
Yeah. So like, I mean, I don't, I don't enjoy, like, I don't know, like, take away foods and stuff like that. So but if I do eat that, you can see the difference. And like, you need a lot more insulin for a lot longer to try and get your blood sugar's Yeah, well keep them in range. Yeah,

Scott Benner 32:25
we're fighting right now the one thing that I did not anticipate when Arden went to college, I mean, of all the things that we prepared for was that the food in the cafeteria would be crappy.

Shirley 32:36
Yeah. Can you imagine? And it's

Scott Benner 32:39
funny, because the cafeteria is beautiful. And the service is beautiful. It's set up beautifully. And they appear to have a host of offerings from, you know, salads and vegetables up to French fries. And but I don't know, like what's going on? Like, I don't know, if they just sprinkle like high fructose corn syrup on everything, or like, I can't tell what's happening. But but you know, art and, you know, art an eighth very, like very well at the house. And then, you know, she get carried out food sometimes. But it wasn't every day and we knew how to handle it. But at college, it's like every meal feels like takeout food. Yeah, I

Shirley 33:19
think like especially like us like institutionalized food. I think that's like, often the preparation. It's probably like quite high in fat where you don't realize it. Like, I don't know, I feel like it still can be like more like fast food than normal food that you prepare at home.

Scott Benner 33:38
Oh, I think so too. I'm like, she said, she told me. She does. I think these people found a way to make broccoli bad for you. And I was like, gotcha.

Shirley 33:49
Yeah, I mean, there's a huge difference in like, just making your own food at home versus buying everything.

Scott Benner 33:57
Yeah, no, it's it's just it was instantaneous, obvious. And it's proving out every meal. So it's just, I don't know what to do about it. I mean, she's not going to not go to college. And she's a freshman. She doesn't have a car with her. And even if she did, I mean, what am I going to do? I'm going to ask her to, you know, become a sous chef. You know what I mean? Like, I don't know.

Shirley 34:18
I'd maybe she'll like, I don't know, I suppose over time, you'll adjust to the different the different options and the things she chooses. What she eats there.

Scott Benner 34:30
Yeah, I have I have gone like, Hey, are you the other day? She wouldn't even tell me what she, she. I was like Arden, do you need help with this? And she goes, I'm fine. And I was like, I don't know if you've seen your CGM, but I don't think you're right about that. And she's, she's like, I've got it. And I was like, Okay. And then later I said, Hey, if you just tell me what you eat, I might be able to help you with the Bolus. And she just didn't answer me. I was like, Oh God, I wonder when she

Shirley 34:56
Yeah, I suppose like it's also that time when you go away from home and you kind of Just like, you want to do your own thing. And yeah, I don't know. I'm sure we'll have times like, yeah.

Scott Benner 35:08
And I'm fine with that. And we're doing a good job of keeping a balance of like, I'm not upper but constantly, I kind of choose moments where I'm like, you know, now I think I should say something or, you know, like, I'll say to Kelly, I'm like, you know, her blood sugar has been like, 170 for three hours since she ate like, I'm gonna, I'm gonna text her. And like, Hey, have you looked at your blood sugar? I'm doing my homework. And I'm like, Okay, you could probably still look at your blood sugar while you're doing your homework. And then she, she looks and she's like, I'll take care of it. I'll take care of it as her favorite phrase. Like the other day, she said, she said, Dad, I've got it. And I answered, I was like, both, you know? Like, we're not gonna lie to each other here. Like, this is not going well. Like, let me help. And then she, it's funny, she got a cold, like she's real stuffy and doesn't feel well. And as soon as that happened, she's like, she's not very receptive to me helping again.

Shirley 36:04
Because she's sick. So she needs her parents think she's sick.

Scott Benner 36:08
She's like, Oh, I'm in over my head. I'll let this old guy text me. I sent her a text the other day and I said, you know, there are people who would pay me for this advice. And you're not taking

Shirley 36:22
I mean, I must say like so with with the 780 G. I don't really get sick often. So I haven't really been sick. So I haven't noticed you're like I haven't been sick. Sick. Weird would affect my blood sugar's. So I don't know how it copes when somebody's really sick. Yeah,

Scott Benner 36:41
yeah. She's like, I don't even know how I got sick. She's like, No one else is sick. Just me and Arden doesn't get sick frequently at all. Obviously, you guys have super immune systems, it's hard to get use.

Shirley 36:53
You're like, honestly, like, I don't get, I don't get sick. Often. I also work in a hospital. So I'm exposed to so many things that I think my immune system is just constantly working.

Scott Benner 37:03
Yeah. Plus, it was strong enough to beat up your pancreas, it could definitely take your call. Right? Exactly. So, okay. Well, I just want to tell you, not that you care. But I imagine that people of Medtronic are thrilled that we're talking about this, like they're like, Finally, this guy,

Shirley 37:19
same. I don't think same like they, they don't give much air on your show.

Scott Benner 37:25
You know, you know, what's funny is that people don't come on like, I listen, I don't know why, obviously, maybe people are drawn to the show who use certain stuff because Arden uses it. I have no idea. But specifically like outside of the show, like inside of the show, like you and I'd have all these conversations in the world. I wish people more people would contact me with them. As far as ads go, I have like a non like I have a non compete with people that I signed stuff with. So if you come to me and you're like, Charlize, like I'm a nutritionist, and I wanted to buy ads on the show, I will tell you, no problem. And part of the deal is I won't take ads from other people who do what you do. Yeah, and so. But I don't know, like, maybe I should stop being so kind, I'll stop doing that. Like,

Shirley 38:14
I think also with Medtronic, I mean, they had the 670 G, which was the first algorithm pump, I had a very brief experience with it. I did a trial with it for like two weeks. It wasn't like the greatest seven ATG is 100 times better. But I only had a very brief experience with the 670 G, so I probably shouldn't even comment on it.

Scott Benner 38:40
But you're one of the spies,

Shirley 38:42
like maybe, I don't know, maybe people are drawn to other products, because the 670 G wasn't the greatest. But it was the first

Scott Benner 38:53
one I often give algorithms. I often give them credit for being first with that, because it's a brave world you're jumping into and you're like, Oh, I you imagine this isn't gonna go great. Maybe Maybe you're saying they weren't excited to tell people about the 670 G but the 780 They're like, yes, now we're getting out there. And and now they've got it going overseas, and it's got to come to America soon, I would imagine.

Shirley 39:19
Yeah. So what are understand so they have the 770 G in America, which is basically the 670 G. But when the seven ATG is available, so the pump, you can upgrade the software. So I think it's just a software upgrade to the 780. That's interest to the new algorithm, I think, I mean, like I could stand to be corrected on that. But I think that's what will happen once they're allowed to, I don't know have the seven ATG within the USA. I think it's just a software upgrade if you're on the 770 G. Yeah,

Scott Benner 39:55
I don't know. If Medtronic is looking for some free advice from me. You might want to hire a couple of like I don't know people to sit in the room and come up with a name that that I can remember, that isn't a bunch of numbers and letters slung together. You know what I mean? Like that? Like, I mean, not for nothing. I can remember guardian. That's a, that's one like guardian. That's your sensor. I can remember that. 670 g 660 g 770 just haven't ate like, what the hell? Like, I don't know. But I do know that this one. I've heard Jenny's told me about it, too. She's like, you know, I talked to people overseas who are having? You know, some good good luck with it. With that, so where is Yeah,

Shirley 40:39
I think because also the 670 G, from what I know about it, like it had like a lot of alarms, it would kick you out of the algorithm quite often. That would randomly ask for blood glucose levels. This pump? I mean, yeah, doesn't have a lot of that. I stay in the algorithm, but like, generally 100% of the time, unless I've physically got out of it for whatever reason.

Scott Benner 41:04
Do you have do you do that sometimes? Do you sometimes leave the algorithm to be more aggressive or something like that? No, I

Shirley 41:11
actually don't. I think the only time I've gone out of it for a short while is if I haven't changed my sensor quick enough. Like when my senses expired?

Scott Benner 41:23
Oh, I see. Okay, so the sooner you're without a sensor for a while. So you just go into manual? Yeah. Okay. Well, that makes sense. So, since basically, I mean, it's a very similar experience to what I'm hearing people talk about with tandem and on the pod and all that stuff. You're having a fairly like, when you see people talking about it, you think, Oh, I'm I'm having about the same experience?

Shirley 41:45
Yeah, I would say so. I also use tandem for a very short period of time before I got this pump. So like, originally, I had motivated with my medical insurance, or tandem pump, which they wouldn't give me. And then they wanted me to take the 670 G, which I refused to take, because they were launching this one. So then they gave me this. So that's a whole different story or insurance thing. But yeah, I originally actually had motivated for tandem because I also tried that for a short period of time with the control IQ.

Scott Benner 42:17
So you were wearing that with the G six. Yeah. Dexcom. Okay. And did you like that?

Shirley 42:24
I did, actually, I really liked it.

Scott Benner 42:28
Surely shot? Are you trying to say that? If you had your druthers, you would still have your tandem control? Like you would Dexcom G six?

Shirley 42:35
Well, if it had been approved, yes, I wouldn't know I would have had it. But I wouldn't have ever experienced the seven ATG, so I wouldn't have known any better. Or I wouldn't have known anything about it. So

Scott Benner 42:46
yeah. Okay. Well, now, you know, which one do you want?

Shirley 42:51
I don't know. I think either one. Really? They both? Do a really good job. Yeah, I think either. I like I feel like the tandem pumps just a little bit smaller, which I did like,

Scott Benner 43:05
just the form factor because you're wearing it's a two pumps. So you have to carry this controller with you. Right.

Shirley 43:10
But that's the only thing like I do feel like they could really redesign the pump. It's a little bit bulky, in my opinion.

Scott Benner 43:18
What a marketing tag. It's a little,

Shirley 43:21
but other people don't have issues with it. So I don't know everyone's different.

Scott Benner 43:27
Well, no, I actually think this is I mean, I think this is exciting. And I'm enjoying hearing what you're saying. Because the truth is that not everybody can have access to one pump or the other or one CGM or the other and the more people who are using these algorithms. I think the better off you know, people with diabetes are going to be I mean, what's your excellency right now?

Shirley 43:46
6.2 That's amazing.

Scott Benner 43:50
How much effort are you putting into being the into having diabetes?

Shirley 43:56
Not like a lot. I mean, I still Pre-Bolus I've also just started using PST but I still Pre-Bolus I do all like that kind of thing. If I am eating a meal, that's pretty high, in fact, because there's no extended Bolus when you're in the algorithm when you're smart God, I do tend to do like a split boiler. So like, just remembering to give myself some more insulin about an hour hour and a half later to help to decrease that factorize later. Yeah. Yeah, I mean, I feel like a lot of people think if they put a pump on with an algorithm, they'll do absolutely nothing. diabetes, which is not really true,

Scott Benner 44:39
right. That's why I ask the question, because I do feel like this is a I mean, what would we call this right now? You know, a new day in diabetes pumping. There's so many algorithms ready now. And I do think that is what most people expect. Like there's a person in my facebook page today who's wearing it on the podcast. For the first day, their kid is I think, sort of like go on to the second day. And well, the first day was too high. And I was up all night and blah, blah. I'm like, well, they tell you that the first day, the first part is like data collection. Like, why are you? Yeah, but they're already judging the whole thing based on the first 12 hours. I'm like, Did you listen to the episode? Like I laid it all out in the episode? And the answer is, Oh, I heard it. So you heard the episode, you knew what to expect. You knew how this worked, the trainer probably told you to, and you're still upset by it. Fascinating.

Shirley 45:31
And then also, cuz I feel like Omnipod five and the 780 Ti are similar in terms of the way they do the Basal or how the algorithm does the Basal, where you kind of wearing it in manual mode for like, that 48 hours, and then it starts to do it itself. But the longer you wear it, I feel like the better it gets. Yeah.

Scott Benner 45:53
Well, that the Omnipod five is not in manual when you first put it on? Well, yeah. But it's in like a learning process. I just, I sit through a lot of trainings with lawyers. I just heard my I just heard a lawyer tell me make sure you say that. That's not true. But I

Shirley 46:11
learning basically,

Scott Benner 46:12
I took your point, just so you know, I understood what you were saying. Yeah, yeah. Right. So it's figuring things out in this first number of days, and then starting to apply it. And then I mean, Part Five is interesting. Like it takes what it what it figured out with the pod you're wearing now, and it applies it to the next one. And then it figured out what that pod experienced implies the next one again, it's, and they're all sort of in their infancy, which is terrific, because that means there's a lot of ceiling, as long as they all keep pushing towards that ceiling. Because I mean, Medtronic is a good example, right? Like you just said the seventh ADG would you say is like 1000 times better than the other one? Your?

Shirley 46:53
I feel? So yeah, because also it does the autocorrection. So, I mean, I don't have to, it just does it. So you know, I don't have to do that myself. I don't have to go into look at the Bolus, whatever it's called the Bolus calculator to see if it's going to AutoCorrect. It just does that automatically. So you don't have to think about that either. You don't have to look at your blood glucose in the garbage to see if it needs to give a correction. It just automatically does it. So I think those auto corrections on top of the basil that's been managed by the algorithm was really great as well.

Scott Benner 47:26
Yeah. Well, and listen to of all the things that it is for you. It's covered by your insurance, right.

Shirley 47:34
Well, yeah, I mean, South African medical insurance is a bit of a, it was motivated for and it took a lot of trying to get it. So I mean, I was refused the tandem based on the Dexcom cost, basically. So the cost of the Dexcom was the biggest issue. So yeah, there's no like clear. What would I say? Like no clear. Path funding? Oh, funding, there's no clear funding for insulin pumps or CGM. So they don't actually have to find it.

Scott Benner 48:11
That's yeah, but you were able to finagle this and get it through? Yes. Yeah. How much effort in time? Did it take you to get this covered?

Shirley 48:21
A lot, many months?

Scott Benner 48:25
Is that the two? Do you think other people in South Africa could achieve what you did if they knew how to go about it? Or?

Shirley 48:33
No, I mean, there's there's been progress made with some medical insurance in terms of funding sensors, they fund up into a certain amount for sensors. And they find pumps they all kind of funded in a little bit of a different way. But then the medical insurance arm with the funded mine fully, but not other people, so I don't I don't even know what they base it on. I don't know they just suck it out their thumb. I really don't know. I don't know if I just annoyed them too much that I keep on at them for like ever. until I'm happy with what I'm getting. But I honestly don't really know what basis they actually decide on their funding.

Scott Benner 49:21
Just literally just you've just beat on them until they said yes, yes. Hey, real quick match. Surely, just reading from the internet. I was born and raised in South Africa, we frequently used the term to suck it out of one's thumb implying that an answer was just a wild guess. Or the notion had no evidence, but was rather just surmise. You know, here

Shirley 49:43
I'm sorry. Is that not a term used anywhere else?

Scott Benner 49:46
I mean, I guessed what you were saying. But I think the closest thing I can think of for America would be pull it out of their ass. I guess is one that would, I guess pull it out of their ass and suck it out of their thumb. Oh, Now we're talking about thumbs and asked isn't sucking so it doesn't sound right to me, but, but I think that's a more of an apples to apples. The I didn't. I was like What did she say?

Shirley 50:08
Sorry? I didn't even think like, no, it's weird had these like different? Yeah What did they call it like colloquialism? Yeah, I don't know what it's called, in places

Scott Benner 50:19
colloquial phrases. Look at you. Oh, I

Shirley 50:22
see some stuff.

Scott Benner 50:23
I only know that word because my publisher used it on the jacket of my book. It made me. I was like, wait, what do I have? I have colloquial wisdom. I do. What does that mean?

Shirley 50:36
I know a big word.

Scott Benner 50:37
Yeah, that's where I learned. That's how I learned it. Anyway, okay. Yeah, I just imagined like, you live on a beautiful beach and there's sharks. It's pretty much what I think of where you live. I don't even know if that's true.

Shirley 50:50
I mean, I work like, pretty much on the beach. But I don't. I don't live far. Like, I mean, it's a 20 minute drive to the beach.

Scott Benner 51:02
Yeah, no, that's pretty nice, actually.

Shirley 51:06
But there's not a lot of shocks and things. I mean, now shocks

Scott Benner 51:10
walking on the beach. You know, it?

Shirley 51:13
Was this sharks Yeah,

Scott Benner 51:14
of course upright on their tails just wandering around in like board shorts and sunglasses. That's how I see.

Shirley 51:24
Sharks. I mean, obviously, there's sharks, but like, they're not like swimming on the show.

Scott Benner 51:30
What time of year is that? there right now.

Shirley 51:33
It's like spring Espace spring for you. Okay. Yeah, that's just too hot.

Scott Benner 51:39
Hot. How hot is spring?

Shirley 51:42
Um, depends on the day. I can tell you what our temperature was today. We had a high of 27 degrees Celsius. Sorry. 27.

Scott Benner 51:54
So that's about 80. Here. That sounds nice. Yeah. Warm but comfortable.

Shirley 52:00
Still a bit comfortable. The humidity hasn't hit. Yet. The humidity. Yeah, it's not as humid yet some as pretty unbearable with humidity.

Scott Benner 52:10
Surely, how is life so close to being good, then it's not nice and warm, good sun, but humid, right. Or people that get it? I mean, like lovely. But then something inside of them breaks and doesn't work. And now you need insulin to come in through a pop. Like we're always so close to it being like, this is pretty close.

Shirley 52:27
I mean, if you really want to know where I live winters the best season?

Scott Benner 52:33
Because it's not cold. Yeah.

Shirley 52:36
It's like the perfect temperature.

Scott Benner 52:38
Yeah. All right. I mean, I don't want to be like mugged by a shark. So I'm not sure what to do about. How do you leave? Very often or no? Sorry. Do you travel?

Shirley 52:52
Like elsewhere? Like what in the world? Or like,

Scott Benner 52:55
yeah, like, do you leave South Africa free with any frequency?

Shirley 52:59
Well, I haven't in the last few years because of COVID. That's a good point. No one's been going anywhere. I have been to the states, and I've been to the United Kingdom and France and Italy.

Scott Benner 53:14
Think that's all nice. My wife went to Paris two weeks ago for work and came back with French COVID. So we stuffed her into a room and did not let her out. was a shame for her.

Shirley 53:28
Shame. No, I haven't had any COVID yet. So I have

Scott Benner 53:32
not either. I'm very happy about that. My son and I were like, she's sick. And we're like, are you sick? And she's like, I think I'm sick. I'm like, Alright, so we like jam to COVID Dessner knows what we did. And we made her do it. And then she's like, Oh, it's positive. We're like, Okay, we all held our breath and shoved her upstairs. Go away. I was like, open the windows. So we

Shirley 53:53
don't feel like we do much COVID testing here anymore. Anyway, so

Scott Benner 53:58
Well, we had a couple in the house. I don't know why, honestly. And I was just like, test her. And then she I think she's must have spent almost a full week upstairs. Like I slept in Arden's bed. I texted artists like I'm sleeping in your bed. She's like, do not sleep in my bed. I'm like, too late. I'm laying in your bed right now. I'm sleeping in your bed. So,

Shirley 54:17
no, I don't feel like we do like a lot of COVID testing here anymore. I don't even think we ever had home kits. So

Scott Benner 54:24
yeah, be honest for her was not I mean, she was sick, and she was tired. And she had a sore throat. But not as bad as like, for instance, the like a friend of mine, if somebody I do work with got it coming back from Europe, I believe coming back from Europe and said the sore throat was unbearable. So

Shirley 54:45
I have heard that, is it? I mean, I think yeah, I think it's different for different people. I don't think it's as like, what would it be like as certainly not like it was a couple years was yeah, when I first started

Scott Benner 54:59
Yeah, anyway, she's fine now. I mean by fine. I mean, she lived through it. You know, they mean, the height of the illness as like how many setups that I have to do to start dating again. You don't I mean, just in case something went wrong surely. Well, you know, I'm too young up by myself, don't you think?

Shirley 55:17
Just in case Yeah, I always tell the kids what do you want to hear that? Yeah.

Scott Benner 55:21
Oh, I don't know. You think she gives us? Like she cares? Surely we were together a really long time. You don't think she's like, Yeah, if I died, I died. Get away from this guy for a little bit. Anyway, Alright, is there what else should we be talking about? About the 780? J.

Shirley 55:37
denies notice anything else you want to know? I mean, it does like the normal pump things.

Scott Benner 55:41
Yeah. Maybe you basically just came on. And we're like, hey, look, it does what you're expected to do. And yeah,

Shirley 55:48
I mean, I think I'm having a good experience with it. Maybe other people don't? I don't know. I have started using fast with it. I don't notice a huge difference with Yes. Like, I don't know.

Scott Benner 56:00
No, no. Yeah. Well, don't you think people imagine it's gonna just work like, instantaneously, instantly?

Shirley 56:04
Well, that's how it's marketed. I feel like that's how it's marketed, which is not really great. Yeah, I can say things like that.

Scott Benner 56:13
No, I agree. I like the way it worked. For Arden. Of course, she couldn't keep using it because it stung like it burned her.

Shirley 56:21
I really I didn't have I don't have that. Yeah,

Scott Benner 56:23
apparently, either you do or you don't. And I have heard some people say that. They use it and it works really well. But then it sort of tails off. And over time. You don't get the same kind of jump from it. I don't know if that's accurate. But I have heard it enough from people. Okay. Yeah. So keep an eye out for that. But yeah, I mean,

Shirley 56:47
I mean, yeah, I feel like the only other things that it really has, which most of the algorithm pumps have, but I know like, whether they call it on tandem exercise mode or whatever, like this, you can set it to target if you're going to exercise. And I think it goes to a point three, so it tries to keep your 8.3. And then it also won't give any auto corrections in that time.

Scott Benner 57:11
Yeah, yeah. That's a good idea. To my settings.

Shirley 57:15
Yeah. And then you can adjust the active incident time. So I can go as low as two hours. I think it's any for anything from two to four hours.

Scott Benner 57:24
That's interesting. You would think that that wouldn't be it's interesting that they give you access to that adjustment.

Shirley 57:31
Yeah, so you can set it as what you want. And I think when they set it up, so like, from my experiences, when they set it up to like, optimize it, they make you go to the obviously the lowest the 5.5 target range, and the to our active insulin term. I think because then it will autocorrect quicker, but I mean, I'm not I don't know, the actual, you know,

Scott Benner 57:56
I've heard a number of people who are, are involved in looping, like say, you can they now believe from watching the algorithm work that insulin is in you for six hours.

Shirley 58:10
Well, I do feel some mine is not I did have it set at two hours. And I've actually changed that setting. I think it's on three hours. Now. It's not a huge difference, but I definitely think it is there for much longer. Yeah,

Scott Benner 58:27
yeah. I mean, obviously if you make the action time shorter than the algorithm gets more aggressive, because it believes the insulin is gone sooner. Yeah.

Shirley 58:36
But then you do is you would experience like I'd then like sort of almost crash eventually. Was it will be correcting tomorrow, and then I'd obviously have too much.

Scott Benner 58:47
Yeah, two hours shocked me. I thought I thought How did you keep it at two hours? That doesn't sound like doable?

Shirley 58:53
So yeah, that you can go as low as two hours right? You weren't and it's it's a it's a setting that is adjustable by the user.

Scott Benner 59:03
Interesting so you don't get beat you don't I guess it makes it well, what I the way I was just thinking about it was like more like looping like, like, okay, I guess you could make that more aggressive and then makes some of the other settings weaker, and maybe you could find a balance there. But in the in the 780 G you have access to the insulin action time, but you don't have access to other settings. Do you

Shirley 59:25
mean like your correction, what is it insulin sensitivity factor or your correction factor that's adjustable, your carb ratios.

Scott Benner 59:37
So you, you do have a lot of autonomy inside of the algorithm to make changes to it.

Shirley 59:42
Um, yeah, it's just obviously then back when you first put it on, you have it at your set, whatever your Basal was, prior to. Yeah. And then after that, I don't I think those 48 hours is just learning and then after that, it doesn't consider that Those Basal rates does its own.

Scott Benner 1:00:03
Yeah, gotcha. So that's where there's a lot of similarity with Omnipod 512. Yeah, yeah. Because that does the same thing like you tell it on day one, like my Basal rates one. And it'll decide later that well, that's not what you need are getting out there. So I mean, it's all very exciting. Like, I just hope they

Shirley 1:00:22
can Yeah, and then I mean, it does. So like if you're out of the algorithm, so between like sensor changes, because there's a two hour warm up, plus, you got to charge the transmitter. So you have a four hour window where it just reverts to. I don't know what Basal right, but it keeps you within the algorithm, but it doesn't keep adjusting its asset base. Alright. Does that make sense? Yeah. No, it does. Yeah. So within those four hours, so if you take longer than those four hours to put out a new sensor, etc, then it'll kick you out the algorithm.

Scott Benner 1:00:54
If you take, say that again,

Shirley 1:00:57
sorry, like when you're doing a sensor change, so you're gonna have sensor readings, it'll keep you on the algorithm for four hours. But in that time, it gives like a set sort of Basal and it doesn't do auto corrections, because obviously, it has no data, glucose data feeding to it. Got it. Yeah. And then after four hours, if you haven't got a new sensor on, then it will kick you out the algorithm, then you just go back to manual, right? I didn't do setup was,

Scott Benner 1:01:26
that's how I handle artists, like, When are the changes the sensor, I'm like, just to open the loop. Because we know our settings are pretty good, and it won't auto Bolus that way. And then I just have her test, which sometimes she does, and sometimes she doesn't, you know, during the two hours, but okay, well, that makes sense. So it's using, it's using historical data to kind of float you through the sensor change.

Shirley 1:01:49
Yeah, so yeah, you've just got that, like, four hour time period. Yeah. And then at all. So as soon as it stops getting sensor readings, you have four hours before it will accept the smart card,

Scott Benner 1:02:03
and then kick you back to manual. Yeah. How long does it take for the Guardian sensor to spin up? Sorry, how long does it take for the Guardian sensor to come online when you change it?

Shirley 1:02:16
So it's, I've got a two hour warm up two hours. But the transmitter needs to be charged between the changes. Okay, so that takes about an hour. I found. Oh, I mean, that is like, like something also they could really improve on their senses. I know that is in the pipeline is a new sensor. That's meant to be I don't know when it would ever be released, but it is in the pipeline. But you know, that like having to charge the transmitter just delays the whole

Scott Benner 1:02:49
it sucks, right? True.

Shirley 1:02:53
Yeah, I mean, not that works. It's not that bad. It works. Like I mean, there's times when it's off, but I have one Dexcom. And there were times when Dex comes off. Like it's I feel like it's a normal sort of thing. Yeah. I didn't like I said, I didn't have good experience with the news. The guardian for it just didn't seem to work for me at all. I don't know what was wrong. But the Guardian three I'd say like, 90% of the time, it's doing a good job.

Scott Benner 1:03:24
Nice. That's excellent. Good. I mean, in the end, what you have is what you have you get very accustomed to it at some point. Yeah, you do. Yeah. A lot of it's just I don't know. Like, it's braids, personal preference. Like, do I want tubing? Do I not want tubing? That's a personal thing. You don't I mean, like, that's, there are plenty of people using two pumps or don't think twice about it having tubing. And

Shirley 1:03:47
yeah, I mean, like, I don't really think about it, but we don't have the option of Omnipod. So I don't actually we don't even have that option. So we have to have tubed so happy. Like, I don't even think about it anymore.

Scott Benner 1:03:58
Yeah. If it was available, do you think you'd want to try it?

Shirley 1:04:02
Yeah, I like trying the different things. I think it'd be nice to just try it. Just to see.

Scott Benner 1:04:08
I definitely I definitely feel that about you. By the way. You're very like, think you're sensible. But you're like, I'll give it a whirl. It's fine. I like it.

Shirley 1:04:16
Yeah. I mean, like, if I had Yeah, I suppose if you have access to try all the different things, I would happily try them. Like I'd wait all the senses if I could at one time just to see what they will say.

Scott Benner 1:04:28
That would be interesting, wouldn't it?

Shirley 1:04:31
So I got put this on. I've won a Dexcom and a Medtronic sensor at the same time. Just out of

Scott Benner 1:04:36
Yeah, because I had them were they close?

Shirley 1:04:40
Yeah, they were. I think I think like for me the Dexcom. What how can I say it so the initial the first like 24 hours I think it leveled out a lot quicker than a guardian does. But once they working well, they were pretty similar.

Scott Benner 1:05:01
Good now I mean, you know you would pretty far generations I mean are we're in now like Dexcom five, six, you know sevens coming soon, actually sevens available in places in Europe already. And then there's libre three

Shirley 1:05:16
good we heard we getting seven lakh next month so I don't know if we are on the Dexcom Dexcom g7

Scott Benner 1:05:24
Super interesting isn't it doesn't usually go that way doesn't usually go outside of us then us with XCOM Yeah, it's nice for you get ahead a little bit.

Shirley 1:05:34
So I don't know, waiting to see. Yeah,

Scott Benner 1:05:37
well, hopefully. I mean, I'm hearing good things about libre three from people too.

Shirley 1:05:42
Yes, that's we we still only have the libre one. I think it is. We don't even have to. So I don't even know why they haven't

Scott Benner 1:05:49
come up with South Africa.

Shirley 1:05:50
What the heck? Yeah. I don't know. How big is that? Kim that has been marketed black, quite extensively in South Africa. And a lot of people use it. So I don't know why they haven't moved on to the next generation of it.

Scott Benner 1:06:05
South Africa is only 470 Square 470,000 square miles. We can't get people libre to at least what the heck. You should start a revolution surely.

Shirley 1:06:21
I don't know why. I don't know why they I'm busy. But no idea. I don't know what like I don't know what approval they need. I don't really know all that stuff. You need to sign this off. There's not a market. I don't know. I feel like there's not I suppose we don't have a huge market because I've done a lot of people have access to ATMs. Ya know, so maybe maybe like having a libre too is not worth their while.

Scott Benner 1:06:46
Sucks. It really does. I wish everybody could have this stuff. Honestly. Yeah. Okay. Well, surely if that? If you're done. I'm done. I think this was terrific. I appreciate you doing it very much.

Shirley 1:06:58
Yeah, I think that's all I mean, I don't think there's any other. I think maybe yours was just to like, say they they have vastly improved on the original algorithm base pump. So if anybody's on the fence about Medtronic, the 780 G is a vast improvement.

Scott Benner 1:07:17
That's excellent. You were on episode 414. It's called Dark. Okay. Just think it Yeah. Yeah, I mean, listen, I tried algorithm. That's my that's my opinion. You know, really?

Shirley 1:07:32
Definitely. Yeah. I don't care which I think it would like for anybody gives a some improvement. I mean, they still input, I think people need to realize you still have to have input. But there's some like, it will improve your quality of life.

Scott Benner 1:07:49
Yeah, I see them work the best on like pre pubescent kids where there's not a lot of hormones happening there. It's pretty amazing. Yeah, you know, and then once you kind of are through your growing period, again, if you eat reasonably well, like they they work really, really great. I mean, that's the one, you know, good.

Shirley 1:08:12
I think for like females if they could, like, I don't know, somehow sink like a something play a cycle to the pump. I don't know how, I don't know how these things work. But I mean, I think that would be helpful.

Scott Benner 1:08:25
Well, surely, listen, I want people working on all kinds of things around that. I prefer. Listen, I think you should probably have like us, like a small warning light on your forehead. What do you think of that? Other people know? What's happening, you know, and and maybe they could approach you differently. For example.

Shirley 1:08:43
Yeah, yeah, maybe. But I mean, I think the pump like the pump companies need to like, I don't know, integrate some sort of Doctor somehow. Yeah, like that. It's

Scott Benner 1:08:52
like a holler button or something like that, where you go, Oh, my God. But But honestly, what it needs to know is it needs to know, the the time before the period, right? It needs to know when you're ovulating. It needs to know after the periods over like there's I mean, for a lot of women, you're gonna see almost three different insulin needs a month, don't you think? I think so. Yeah. Now well, I and yeah, no lie. Somebody should try. Like just I must

Shirley 1:09:20
be able to there's so many like tracking apps. And I don't know, you could track your period on your garmin watch. So

Scott Benner 1:09:29
there's some of those health straps are measuring like ovulation and periods by body temperature.

Shirley 1:09:36
Wow, they must be able to, like integrate, like Apple Health or something because you can track on there. I don't know. There's just like so many. But I suppose maybe it's

Scott Benner 1:09:47
I'll tell you right now get a couple of women of type one diabetes, put them in charge of these research and development portions of these companies and I guarantee you somebody will start looking into it really quickly. I

Shirley 1:09:57
feel like there must be a way to integrate it somehow. setting on the pump so that if you're female, you can switch that setting on.

Scott Benner 1:10:04
What would be very nice, because if I wasn't helping my daughter right now, illness and a period at the same time, she's only 18 She wouldn't know what to do. She'd be making herself crazy Bolus and constantly and just would never get her anywhere.

Shirley 1:10:17
So, but I mean, a lot of like, it's not only her I mean, there's there's plenty of females that don't even consider it. Well, they don't think they don't consider it, but they don't actually like, look at the patterns or look, you know, know what it is? Yeah. Well, if you don't know, like, Oh, my goodness, I'm so hard on a worm Ha, I'm like, Cool. You can track your cycle. You can? I don't know, there's a way to figure it out.

Scott Benner 1:10:41
No, no, I agree with you. I think that a lot of people because they don't know what some of the variables could be. They just end up thinking that this is the randomness of diabetes attacking them, you know?

Shirley 1:10:51
Yeah. And when it's when it's possibly not like we are in your cycle, like what hormones are being produced. So

Scott Benner 1:11:00
that's why there's a whole variable series inside of the podcast. Sure, exactly. Yeah. I'm doing my best over here. Okay. I feel attacked. I'm just getting I don't feel. You're terrific. I know. It's evening for you. I'm gonna let you go live your life and I really appreciate you doing this for me. Thank you. Yeah. My pleasure for having me. Of course, anytime Hold on one second.

Durbin, Shirley, thank you so much. And thank you to Omni pod for sponsoring this episode Omni pod.com forward slash juice box. And of course dexcom.com forward slash juice box. Use the links get started with Omni pod or Dexcom today, learn more. Check out their websites. Yeah, gotta love it. dexcom.com forward slash juice box Omni pod.com forward slash juice box. Once again, Shirley was terrific. Thank her so much for coming back on talking about her life with diabetes, her seven ATG and all the rest. I think she makes she makes me feel bad about my accent. Versus just so nice. Oh, geez. Thanks so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. I just was like talking to myself there. I forgot. I was trying to end the show.


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#945 In the Loop

Scott Benner

Mike has type 1 diabetes and he knows a lot about Looping.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome to episode 945 of the Juicebox Podcast.

Today I'll be speaking with Mike He is an adult living with type one diabetes who is very involved in the looping community, the DIY, do it yourself, looping community, Mike and I are going to speak about loop and Omni pod five for a little bit today. If you're interested in algorithms and insulin pumping, this one's for you. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin. If you're interested in building a foundation for better health, check out my link for ag one and it's a new link. Drink ag one.com forward slash juice box. When you start with ag one with my link you'll get a free one year supply of vitamin D and five free ag one travel packs with your first order drink ag one.com forward slash juice box and get 35% off your entire order at cozy earth.com. When you use the offer code juice box at checkout. There are links in the show notes and links at juicebox podcast.com to 81 Cozy Earth and today's sponsor. This episode of The Juicebox Podcast is sponsored by cozy Earth. I am right now this second on my way to a movie as soon as I record this ad I'm gonna do a movie with my family. I just pulled on my cozy Earth joggers because it's the most comfortable thing I can think of to go hang out that movie theater with I'm going to have on the sweatshirt from cozy Earth. I'm going to pull on the joggers. I'm going to watch me a film. And when I get home tonight, I'm slide into my bed with my cozy Earth sheets. And I'm going to take a shower and warm and dry myself off with my cozy Earth pals. I am not making any of this up. They are really cozy, cozy earth.com use the offer code juice box at checkout. The podcast is also sponsored today. By touched by type one touched by type one DoD word. They have a big event coming up in September that I'll be speaking at. I hope to see you there touched by type one.org. Why did I get the VIP? Oh, let's Did you because I was out of days? Oh, yeah, I just I was literally. So the um, so every year, I might leave this part. And just so you know, every year, I consciously think don't don't book the show so much that you can't add somebody like I have this real like, don't do it. Scott Don't you know. And so I start every year out very carefully, I put out a link at the beginning of the year, I say, Hey, we're gonna we're gonna book like the first six months right now. But then I'm not gonna book the next six months until, I don't know, June or something like I'm gonna wait a little bit. And so many people reach out with so many great ideas and stories and from different walks of life. I just keep going. Yeah, yeah, like, sign up for that sign up for that. And in three weeks, you can't get a recording until like October. And so by the time March or April rolls around the years full already. And then people reach out that I still want to have on the show. And I'm like, alright, well, I mean, I don't record on Mondays, except for with Jenny or something special like that. So go ahead, just take this special link and go ahead and take something on Mondays. And then before I know when I give away Fridays. And then before I know that I'm recording the podcast every day, five days a week and getting to the point where I did somebody on Saturday night the other day, because I just I don't know how to say no. So I want I want that problem. Yeah, I love that. I love making the podcast. So anyway, you ended up with the VIP link because I was out of days. But also, you're a VIP, like hell. Well, thank

Mike 4:05
you. Yeah,

Scott Benner 4:06
whatever your mom told you about you being special is 100% true. You go ahead Introduce yourself whenever you're ready.

Mike 4:14
Hi, Mike. I've been type one diabetic since 2003 How old are you? I am 32 You're 30 No 31

Scott Benner 4:29
You're 31 When will you be 33 that that confused you?

Mike 4:33
Oh no, I am 32

Scott Benner 4:35
Nevermind 32 Okay, my whiteboard is already a mess.

Mike 4:42
Like my birthday is in 90 So like the last digit matches like my your age, but only before after the birthday. So I got to think like right is it before after my birthday?

Scott Benner 4:54
You were born the year after I graduated from high school. Well, that doesn't make sense. So if I had 19 add to this. Oh, baby, let's make sense. 1011 Carry that it's the one I wasn't carrying the 1345. Yeah, that makes sense. That makes sense, meaning that simple math holds up yet again, like, I want to see the proof. Well, if I took a picture of it, then everyone would know how bad my my penmanship was. And I don't want that, either. So, when you were diagnosed, was there like, Oh, I'm definitely gonna get this because all my brothers and sisters have her or have seven uncles that have diabetes, or was it a surprise?

Mike 5:34
No complete surprise. There's, like at the time, I don't think there was any real autoimmune known in my family. Now, my grandmother passed. About a year ago, she had Alzheimer's. And then also type two, which I guess isn't connected. And then my cousin on that side also has lupus. And my keep going, my grandfather on my dad's side has rheumatoid arthritis or head. He's also past the past year. All

Scott Benner 6:15
right. Okay, well, yeah, you were one of you was gonna get something lucky, you might.

Mike 6:24
But I think all that happened after I got diabetes. So we didn't, didn't have the warning. So

Scott Benner 6:29
all of that happen in meaning that you realized it, or she developed Alzheimer's late. Lupus happened since you had type one. I mean, your grandfather's had arthritis his whole life, but they diagnosed it as RA or what do you what do you mean by that?

Mike 6:49
I just made like I was, I had diabetes. First before anyone else was diagnosed with anything.

Scott Benner 6:56
Okay. Well, then you will. I mean, I also

Mike 6:59
I didn't know that the autoimmune connections until listening to your podcast.

Scott Benner 7:03
Oh, okay. I see. So there would be even you might even know, my grandfather's got, like, arthritis really bad might be how people think of it.

Mike 7:14
Yeah, and I don't know if he actually had a diagnosis or not. I just know, that's what my parents had said is that he had Ra. And my brother might have it, he might not. He's got some joint issues that he's trying to work through right now and figure out but the doctors keep running in circles. Yeah,

Scott Benner 7:31
that's what happens. I think that everybody, honestly, it's a shame. Have you heard Jenny talked about how she manages it with her diet?

Mike 7:41
I think I remember like, she doesn't eat, like dairy. Eggs or RA or something

Scott Benner 7:47
is some nightshade things and it's in her she's an episode about how she eats and she talks about it in there. But I wish her brother luck. It's not. It's not fun, that's for sure. Okay, but you just type one. And when you're diagnosed, how I mean, I could figure it out, but just telling me how old you were when you were diagnosed?

Mike 8:07
1212 That's like, sixth grade. Yeah.

Scott Benner 8:13
Was it a situation where the management of it was given to you or did your parents handle it?

Mike 8:21
It was like, they they helped me in the beginning figure stuff out my mom's a dietician. So like she helped lift helped me with carb counts and figuring all that early on. Of course, I didn't know until listening to your podcast about fat and protein and other things that can affect it. So it's just counting the carbs but you think it was pretty much but yeah, me for Well, I guess. I think in the beginning, it was more so like someone else would figure out the dose or like my mom for the first six months while I was still on injections. But then as soon as it moved over to the pump that was just putting the carbs press Bolus, eat your food

Scott Benner 9:03
in the cars and so there's no Pre-Bolus thing there was no adjust no adjusting after meals if blood sugars got higher or did you even test afterwards to see where they were?

Mike 9:13
I occasionally test after and like if I was high I would like I'd put the number in the pump and if the pump said correct I'd correct

Scott Benner 9:22
okay, well that's something did you hate it as a child? Did you not mind it? Do you remember?

Mike 9:29
Um, I I'm pretty good at ignoring things. I feel like I did an okay job. Like Maitland sees I was looking back through and it saw like consistently in the sevens. I think the highest was like 8.2 the lowest was like 7.1 so it just kind of like shifted around in there. I feel like it would have been a lot lower had had been told the Pre-Bolus But yeah,

Scott Benner 9:57
how did you feel growing up like physically Did you feel healthy?

Mike 10:02
Yeah, I didn't, I didn't notice any problems. I wasn't like a super athletic kid. I was, you know, I'd play sports and stuff, but not very athletic, up until like high school where I could get out of Pe by joining band.

Scott Benner 10:20
Like, I just want to dig into that for half a second. What does it mean that you played sports? But you weren't athletic? Were you the, were you the guy that we all looked at? And we're like, I mean, we like

Mike 10:29
yeah, I was I was the one dancing in the outfield. They're like spinning around in circles and the ball get hit and be like, oh, there's a ball, I should go catch that.

Scott Benner 10:37
We like bikes, and we're going to tolerate this, but he's not going to be here long term. That was the feeling.

Mike 10:42
It's neighborhood organized sports, you can't kick a kid out.

Scott Benner 10:46
You'd be surprised, Mike, but I hear what you're saying.

Mike 10:50
Maybe for being a nuisance, but not just for not being good. Can't

Scott Benner 10:53
you just make it very uncomfortable for them until they leave?

Mike 10:59
I'm also kind of like a pleaser. So it's like, you know, my parents like sports or so they think baseball is important. And I did not. I'm kind of like, I can go with the flow with things a lot. Like even if I don't really enjoy something like, I didn't hate going. Can I Can I ask if I had the opportunity to leave?

Scott Benner 11:19
Yeah, let me if I had the opportunity to leave, I'm just getting the hell out of there. If I might, I know this is not really why you're here. But you and I talked before you came on, we might not actually have a reason for you to be here. So I can talk about whatever I want. Can you tell me a little more about that? You understood? How that baseball as example was important to your parents? They told you or they were just big fans of it? Or how did you know?

Mike 11:46
I don't know it like my dad's just always thinking, watching sports. Like, you know, you'd be excited for me to go play baseball, or I don't think it was also like they would encourage just because, you know, it's better to have your kids go around play sports get energy out, rather than sitting on the couch,

Scott Benner 12:07
or cooking math or something. So as 12 year olds tend to do. So she they wanted you to be active. Do you think they picked baseball? Or do you think you did?

Mike 12:21
I don't really remember it was more like that started in like T ball. So a failure. It was probably just like, hey, there's a team. Go join that.

Scott Benner 12:31
scale of one to 10. Mike, how good were you?

Mike 12:35
Oh, probably. We'll give it a two. Okay. Okay. All right. I could catch a ball and throw it but you know,

Scott Benner 12:41
do you ever remember a coach looking at you with disdain?

Mike 12:45
I don't remember. But I'm sure even if they did, I just went right over my head, you just wouldn't

Scott Benner 12:50
have cared. I'm really like now, I'm not trying to be amusing. I'm trying to like trying to gauge whether it's like as a young child, if you were taking yourself to this place and thinking, Well, my dad likes it. And I don't hate it. And I you know, I'll do it like, and if you ever looked up and thought, oh, this person doesn't want me here. So you didn't have any of that feeling like you weren't great at it? And didn't. It wasn't something you were excited to do. But But so then my question is, what's your remembrance of it? Like, how would you characterize playing baseball? I don't know. Is it a good? Like?

Mike 13:31
A neutral?

Scott Benner 13:35
Okay, I'm asking like, I'm asking you an uncomfortable question, because I want everyone who is about to force their child to play a sport that the kid doesn't want to play to hear that in hindsight, this was what you call it wasted time. Because there was there it was there something you could have done at that age that would have been better for you.

Mike 13:52
No, I mean, in hindsight, I think it was good. Like I said, it kept me kept me active kept me moving.

Scott Benner 13:59
All right, well, then they heard it from you, Mike forced your children to play sports even if they don't want to. That's what you said, right? Yeah. Keep them moving. I'm encouraged by that because I've met I know you you know what I mean? I don't know you I know kids like you. And I sometimes wonder about that. I think oh, there's two seasons where this kid just I mean, obviously, I think everybody but their father could not have cared less about this thing did not want to do this and got brought there every day. And it makes me happy to think that somewhere that kid has grown up and and not devastated by the experience hopefully using you as an example. But then you said you joined the band but what did you play an instrument?

Mike 14:45
Yeah, drums. So like marching band counted as Pe

Scott Benner 14:52
How was that for hookups marching band?

Mike 14:57
Uh, I mean, I was just a freshman year of highschool, and then I moved overseas, my dad's in the Air Force. So we moved around a lot. And every high school I went to three different high schools, and each one got smaller and smaller, and the bands got worse and worse.

Scott Benner 15:12
Did you stop going?

Mike 15:15
I kept playing. I really didn't like the last my senior year, because it was like super small schools like 200 300 kids maybe. And the band teachers spent most of the time talking about like Broadway or something nobody cared about. And I was the only percussionist so there'd be like, here's seven different instruments that are supposed to be played. And I'd be like, How many can I play at the same time?

Scott Benner 15:40
You kids don't know this, but I was the dog in a production of my fair lady in high school. By the way, is there a dog in My Fair Lady?

Mike 15:48
I don't even I don't think I've seen that.

Scott Benner 15:50
I don't know either. I just made that up. I feel let's just roll with it. Pretend there is now there. Damn. Right. As everybody's listening. It's like it's fine with me. There was a chihuahua running around the whole time. Well, that's interesting. I mean, it's interesting that that it's an it sucks a little bit that you found the thing that you liked, and then because of moving around, and dwindled on you, so you're not a drummer anymore?

Mike 16:12
No, I still drum. Oh, nice. But like, drum set, like in bands and stuff. Oh, it's

Scott Benner 16:18
excellent. You do play you play in bands? Yep. How does that

Mike 16:22
not at the moment, at the moment, I'm in between bands, but COVID kinda ended things like make things a little more difficult for a while and that band ended but yeah, I'm in for a new one.

Scott Benner 16:33
Nice. You off to college then after that?

Mike 16:37
Yeah, yeah. Went to college straight out of high school. And they were still in Germany. So and then I went in Florida to college.

Scott Benner 16:45
Did you feel any pull towards the air force or pressure?

Mike 16:51
Well, I was diabetes, so you got out of it. So in the Air Force anyway.

Scott Benner 16:55
How about your brother? Is he in?

Mike 16:59
No, he considered it for a bit but ended up not?

Scott Benner 17:02
Do you think your dad was more disappointed that you guys didn't go in the Air Force or that you couldn't play baseball?

Mike 17:08
I think he's pretty happy with this no matter what.

Scott Benner 17:11
It's a very healthy answer. Mike Good for you. I would have chosen if you gave me if somebody threw a bullshit which is what I just did choice that me I would have chosen I would have been like, I would have thought about it for a second and pick one is very healthy

Mike 17:25
weight, which was a see all the above is very healthy

Scott Benner 17:29
choice was excellent. I'm so thrilled that that's how you answered. Okay, great once you go to college for

Mike 17:37
I started electrical engineering and then the first semester I changed to computer science.

Scott Benner 17:44
And are you able to employ that education in the in the adult world.

Mike 17:49
Um, I worked at a place developing or like taking other iPhone apps and like keep updating them or for about a year, two years, maybe after college, and then I switch to another job where I print and scan stuff for lawyers. You enjoy that there's a lot of it pays the bills and it's it's something different every day. Like, I've been there like six, seven years, and there's always something like new that'll come in and be like, alright, I don't know how to do this. Let me figure out a way to do it easier quality or

Scott Benner 18:26
problems not it's not it's not just repetitive it's, it's something you can actually employ your brain with. Yeah, it's

Mike 18:33
like a mix between repetitive and not because some days you'll go in and you're literally just feeding paper into a scanner for like the entire day. Oh my god. But then the next day, it'll be something completely different. So

Scott Benner 18:45
here's my next, my next false choice for you the job or we're having to play baseball again on the schedule of a child which would you prefer right now?

Mike 18:56
What's much rather be at this job than play baseball.

Scott Benner 18:59
That's what I was getting. Okay. Alright, so you manage your diabetes? Sounds like pretty much on your own. Were you doing that MDI with a pump?

Mike 19:11
mph for the first six months and then as soon as we could get to a pump, we got a pump.

Scott Benner 19:16
Okay. Do you have a CGM now present day?

Mike 19:21
Yeah, I do now. I think I started maybe senior year of high school, maybe freshman year of college. I can't remember when I first got to CGM, but um, I was Medtronic up until a year and a half ago. So it was basically I treated it more like a don't die alarm. Like if it beeps look at it. If it's super high, then start adding corrections because I think you know, my it probably didn't beep until 200.

Scott Benner 19:48
How would you describe your your management in that time? Your management style like were you on top of it? You know, were you a person who was like I'm not, you know, 200 is my number, you can't go over 200 when it got to 200. Were you worried? Or did you feel like an intensity about how to handle it? Or just was it just part of the day and you just did what you did and didn't think about it?

Mike 20:14
Yeah, it's kind of just like in the background. I tried not to focus on it too much. But like, you know, if I thought something was wrong, if it beeps at me and says, I'm Hi, then I'm going to Bolus but then I probably won't look at it for another couple hours or until it beeps again. I see. And I'm pretty good about changing settings and stuff. Like if I'm, I noticed that I'm consistently going high after dinner, I changed my ratio, change basals and stuff. So a lot of times, that wouldn't be until like, you know, every three months, you'd have your endo appointment, and then I'd look all over the stuff like right before the appointment and wait that three months. And then I change it all and then go in and they'd be like, oh, yeah, that sounds good. You can change it to that. Or you could move this a little bit.

Scott Benner 20:59
Not incredibly helpful. At the end of this office.

Mike 21:07
Yeah, no, I mean, like a little bit, but I never really found too much use out of and two appointments. Yeah, like now I go. About once a year, a little more frequently, like nine months.

Scott Benner 21:19
Get your scripts. Yeah, basically do anything. When do you find the podcast?

Mike 21:28
Well, I just looked in the in the app. Not too long ago, we needed that Spotify end of the year thing? Yeah. Because I was on Apple podcasts. And it said, I listened to the first one in January 18 of this year.

Scott Benner 21:41
Oh, so you've just the year for the podcast for you. Yeah, interesting.

Mike 21:46
I swear, I heard the fatten protein episode in December, like a couple of like a month before that. But maybe I listened to it like on the website instead of podcast. Right?

Scott Benner 22:01
So you see, I mean, 2003 2022. So for a long time you live the way you live? And get did finding the podcast change? I mean, if it changed anything for you, what were the things that you adjusted?

Mike 22:21
Well, I found thinking like a pancreas first. And then, so like I learned like Pre-Bolus and a lot of good stuff from there. And then listening to the podcast just reinforces that a lot. As well as add a lot more stuff like the crush it and catch it. While I've you know, kind of done that before. I didn't really think about it as much. You know, it's just like more of the rage Bolus, and then you go low, so then you feed sugar. Whereas now it's like, okay, I know I can just give a massive dose and then like, so loop now. So I can look like right now I need to put in the carbs now. And then it'll even out before I get low. And let

Scott Benner 23:02
the loop jump in. How long have you been looping?

Mike 23:05
Since almost two years now, years, which is when everything, Eric actually I guess the first big switch was getting a Dexcom. Like I was, I remember watching seeing commercials for it on TV commercials kept coming up. And then it kept telling me like, you don't need a finger prick. And I'd be like, bullcrap, I know you need a finger prick, because I have to ferment Medtronic, like he still got to do it once a day. Like it's better than having to do it as much but. And I just kept ignoring the commercial, because I kept thinking that like, they're quite right. When I finally looked into it, working from home and COVID. So, a lot more time on my hands. I looked it up and I was like, Oh, you actually don't need to calibrate this thing. So then I got that. And then I was I also hesitant to get it because I wanted. I like like I've always been trying to get the next best thing, but it's always a Medtronic. Up until recently.

Scott Benner 24:05
Is that just what your doctor's office gave? You? know, it's

Mike 24:09
I mean, that's what it's, well, no, it started out. I remember I think my mom picked the like, she went to a thing and they had the Animus ping or the whatever the Animus one was and a Tronic. And like she thought the the only perk of the Animus that she saw was like it said pizza in it. And then the Medtronic said square wave for dual wave, right? And she was like, well, he can figure it out either way, and the reps seem to like Medtronic better. Yeah, I got with that stuck with that a while. And actually the last Medtronic I got the dreaded six seven D. My endo tried to convince me not to get it. But I was like, No, this is this is the new best thing. This is going to be auto mode. This is going to figure everything out. It's going to be easy sailing. And I was very wrong.

Scott Benner 25:01
All right, we're gonna dig into a couple of things. Here I have notes. My first thing is I want to, I want to say, I know a lot of people because of what I do that, you know, work behind the scenes that companies like, you know, Dexcom. And in places like that, and a lot of those people who make those television ads and whose job it is to try to reach people and and send the message to them that they might want to check more of it out. And I think any of them that heard what you said a second ago are still banging their head against the desk. They're working so hard. They're like, Hey, listen, just come check this thing out. Here's what it does. And you're at home gone. No, it doesn't. wires. Exactly. What I said, is people crankies people, Mike are killing themselves, trying to make people just learn about a thing. So they can decide if they want to do it. And I guarantee your answer just that it ruin their whole day. They're just like, I Why am I trying? Why do I give up? I actually, you might have seen this online. But I just put out an episode the other day with Jake Leach. And this is going to be six months later after people when people hear this but Dexcom G seven got FDA approval. And I hustled my little butt around getting Jake on to talk about G seven and go over all the questions that I had, you know, people gave me through the Facebook page, I had a couple questions on my own. I put together this really tight 30 minutes with just rapid fire great questions. His answers are super clear and valuable. We'll help you make decisions about what you want to do or what you don't want to do. And then the next part is I put it online, and then I have to support it through social media. My job is repetitive too. So I you know, put a post on Facebook, I put a post on Instagram, put a post here and then I and then I involve myself in conversations with people and try to answer questions and point them in the direction of the things they want. It's a bit of a, it takes a lot of time. And in the end, what I want is for people to listen, I made a thing. I think it's helpful for you. If you think it's helpful, I'd like you to listen to it. The other side of it the business side of it is I need people to listen to the podcasts that they hear the ads so that maybe they click on a link so that somebody will buy another ad again the following year so that I can continue to make the podcast It's the circle of life kind of thing. If people don't click on the ads, I lose the advertisers. If I lose the advertisers, I have to go get a different job, you understand. And so, so every time this happens, and I never say like I never speak out loud about it goes on for years, you put up a link. And inevitably, or three or four people come into some sort of a commenting thread and say, I don't have time to listen to this. Just tell me does it do this? And when I see you know, where does it do that. And I see that it crushes my soul. So like you don't know the way the SparkNotes Yeah, I don't want to listen to your little podcast thing just now. I don't want to just give me the answer. But put it here so everyone can see it. So no one has to listen to the podcast. And and what you don't realize about that is that I spent my entire day on Friday getting that out to you in a timely fashion. I did not eat dinner with my family because of that.

Mike 28:17
We posted those questions and it was up like the next day.

Scott Benner 28:20
I hustle Mike, you understand? I grew up a sheetmetal shop. I take that attitude. I applied to podcasting. So I'm a hard working like person. And then it just I don't I put up this what I thought was a funny post about like, are you people I put it up as a poll. Are you people trying to kill me? Oh, I

Mike 28:37
am not trying to kill you. I think you might accidentally voted for yes. Because I wanted to see who voted for yes. And I was like, Oh, wait, no.

Scott Benner 28:44
Well, overwhelmingly, I think there's like 500 votes that people were not trying to kill me. But not the point. I'll

Mike 28:51
take this one. Yes, though. Once successful, yes, we'll do it.

Scott Benner 28:56
You mean to get me dead or just to make me feel badly about it? I don't, because I don't feel badly about it that you should know. i It's to me, it's like, Oh, you shouldn't it's all in fun. You know, and, um, but I did. It is an exam, it is an opportunity to, to let people understand kind of the back end of this thing, which is, you know, if you like the podcast, I'm happy like, and I want you to like it. I am trying to help people. If you heard me speak privately, you know, this is the time of year where I mean, this is the time of the year where I'm renegotiating with all the advertisers. And inevitably, in every meeting, I say every year, I can't believe how lucky I am I do this thing that I really enjoy and love. It actually helps people and it pays my bill. I have bills that get paid because of that I can like send my kids to, you know, the grocery store. And I feel very lucky about that. And then somebody comes along a person who, you know, has been around for a really long time. And it was like This is all about money to you. And I was like, what? In the hell are you talking about? Like, if this was all about money to me, I would have put this ad, I would have put this this episode together slowly over days and given it to you sometime next week, which, by the way, is what everyone else will do. They don't they're not in a rush and released it on Patreon or something. Yeah, right, or, you know, put it here and there. And we're charged you to do it or do it some shows do which is give you like, 10% of the information and then push you towards a coaching service or something. And I was like, That's so not me. I'm so transparent. And anyway, I just don't know, it's, it's not easy to do. The marketing of your content. It's not as easy as it might look from the consumer side. We're like, oh, I you know, I, this guy on YouTube, I really love he talks about cars that I drive and puts up an episode every week, and it's well produced, and you just kind of take it for granted. But that person is probably spending. I mean, I spend 70 hours a week making this podcast. And then you know, and then we're like, stop pushing your links. And I was like, Look, if you don't click on these fucking links Mike Marino podcast, like, like, I don't do not understand how the world works. Like, I can't just, I got a family. You know what I mean? So anyway, I don't know, like, I was trying to,

Mike 31:23
I think I think Dexcom should start putting you in their commercials be like, This is our product. But if you want to know how to really use it, check out that Juicebox Podcast? Well, I'll tell you on the positive, you can get a put out to whoever watches TV. Well, on

Scott Benner 31:37
the pod made the three on the pod five episodes with me this year. That was yeah, those are good. Yeah, it was a lovely, like partnership there between those. I think, if I'm being honest, I stay on the periphery of that space. Like, you know, companies don't put my face on things. But it makes sense to me, because I don't I don't have diabetes. Like you can't you imagine the backlash they would get if they were like, Hey, this guy follow him? You don't I mean, like, Does that bother you at all that I don't have type one?

Mike 32:12
No, not at all. Because of all the content that I get out of it. Like, I don't really care who's telling me as long as it's good information.

Scott Benner 32:20
I mean, that's makes that makes sense to me. But I don't know where people's sensitivities lie, you know, and they overall, it hasn't been a problem for me. I just imagine. It's my imagination that people sit in the room in a meeting and they go, who do we want to put on this? And somebody goes, that podcast is very popular. And then someone else says he does not have diabetes? And I bet you that puts a stop to it every time. You don't I mean, I feel like

Mike 32:43
it's it's almost even better that it's that you're the caregiver rather than the diabetic, because I feel like a lot of the times are, it seems like some parents are like, super into taking care of their children like you. So it's like, focus on every detail, make sure everything's right, figure this out. Because you're hearing about another person, whereas like, for, like, in my case for myself. Up until like two years ago, it was just kind of like, well just try something if it works, it doesn't just try something else.

Scott Benner 33:15
In that vein, like it's not as fine tuned. Yeah, in that vein of thinking, what is what was, I guess, like, go back a couple of years. When you think about managing your health, around diabetes, specifically, what's the goal? Is it a daily goal, a yearly goal, a lifetime goal.

Mike 33:40
I mean, like, ultimately, the goal is just to live without complications as long as you can, or to minimize the complications. And then, but then there's, there's so many different data points now, especially now that I have all these different naps and Dexcom. And so like, now I like every day, there's a goal to hit for like your time and range or, and then you can shift that into different ranges be like, your 70 to 140 range should be some number and your 70 to 180 number should be a different percentage. And then there's a one C there's standard deviation. There's a lot of goals now.

Scott Benner 34:24
Yeah, well, there is do you think of your diabetes as a in the moment thing? Is it a big picture thing? Is that a blend?

Mike 34:37
Me I think it's got to be a blend, because your sugar affects you now, but it also affects you later?

Scott Benner 34:43
Well, yeah, it definitely has to be but how do you think of it? Like, like, overwhelmingly what is most of your time spent doing? Like don't get low right now? Don't get high right now. I want the week to be good. I want the day to be, you know, in range or like, you know, I'm trying to figure out out, help, it's probably

Mike 35:01
more immediate, like what's going on right now? Or like, what's go? What's about to happen? Or what just happened? Like, the next hour in the past hour? And now? Because you can't really change stuff for next week. I mean, I guess you could, like bagels and stuff like overall, but

Scott Benner 35:22
yeah, I you don't even know like so is that you brought up that, um, you know, the parent of someone with type one and my my role changes drastically as she gets older, right. But my vision of it, my perspective on the issue is completely different than hers. Because I hold all the perspectives at the same time. I want her blood sugar to be stable and steady and low now. And I'm worried about her future. Both in the short term and long term, I'm worried about how she'll deal with this while she's in college, will she keep focusing on it? Will she not? Will she give it away at times to do other things, which I expect? Will that translate into her her young adult life as I got away with it in college, so I'm not going to put too much effort to it now does that go into her late 20s That she started having problems when she's 30? Like, when I when I think about Arden's health. I think of it the same way I think of my son going to college and meeting people and maybe having a relationship and looking for a job like I see the whole like, Mike, you don't do you have kids? Yeah, no, you worry about the entirety of everything when you have children. I don't think of it as worry. For me, I think of it is concerned, it's considering I'm always considering the whole thing. But I don't think that as an adult living with type one. That that's the same for everybody. I mean, I've spoken to a lot of people. And I think overwhelmingly, that's not how people think of it. I think it would be too much to think of it that way. I could see why you wouldn't. But I also think that a certain amount of that is what leads to these outcomes that you want. So it's just interesting for me to hear from an adult about how they like conceive day to day of diabetes. That makes sense. Yeah. Yeah. Okay.

Mike 37:24
And, like I said, for the, like, the consideration also changed a lot once once I got Dexcom, because then it's on the phone, because like, even when it's on the pump, like I'm not looking at the pump a lot. Like I said, Whenever it would be, I'd look at it. But now that it's on my phone, it's on my watch. Like, I can see it a lot more often. So it's a lot more. There's a lot more management or like things to do. Yeah, but I'm trying to say,

Scott Benner 37:53
but that stuff helps. And that's what I want to know, like, being able to see it more readily on your watch, for example, not having to dig into even an app or do a blood sugar test or pull out a meter or something like that. Having it there helps. Having goals helps having an app that says hey, you're in, you know, we're our time and ranges, you know, 60%, and it's 40% here, and we're low 5% of the time, or whatever the numbers are, like it gives you something that you can kind of quickly focus on. But then do you adjust after that? Like when you see it, if the numbers not where you want, do you consciously think oh, I've been high too much this week? That's probably because I ate out a number of times, I didn't have a lot of success boasting for my meals or like, do you give it that much thought? Or do you just think, Oh, I've been high a lot, I don't want to be high as much.

Mike 38:43
Yet. Now I do. So now like about once a week, I'll look back at in Nightscout. Like, I'll look at like the daily reports and kind of see what the trends have been. Like, if I'm more consistently higher or lower in a certain timeframe, then I'll adjust either basil or carb ratios or ISF

Scott Benner 39:05
I'm excited for. But then I'm

Mike 39:09
also like tweaking those in the moment too.

Scott Benner 39:13
Yeah, like when something just goes the way you don't expect it to you you're in the moment helping it and then big picture, you're looking at it as well.

Mike 39:20
And I'm I'm a pretty competitive person too. So like having, like having all these stats to like, when I zoom out, I look at my management now. And I'm like, Oh, I'm doing pretty good. I'm like, you know, 91% between 70 and 180 75% between one and 130 or 70 and 130. But then when I zoom in and like the day to day I feel like I'm always like, Oh, am I again? I'm messing up fix it. I'm low again messing up fix it. But like when I zoom out then I'm like okay, overall it's it's going well

Scott Benner 39:59
yeah, it's I think of it the way I do because you're 100%, right? If you look at any 24 hour graph, most of the time, you're gonna be like, Well, what happened there? You know, and then you look back over a month ago, the month was good. So if that day existed within that month, you think, Alright, well, the month was good. But there's things happening during the day that I'd like to have a better handle on. And which one, I think the problem is that the people can just then go, well, the 30 Day was good, I won't worry about a spike to 240 that lasted five hours. And so that's why I think like thinking about it super simply, it works best for me. I'm not, you know, I'm still in the middle of trying to get Arden to think the same way I think about it. Or if I can't, I'm going to have to find a way to take the way she thinks and apply it to diabetes and adjust that, or she's going to have to find that maybe more specifically, right? Because for me, give me you've heard me talk about a million times, like just, you know, one of the big people are like, what are the rules of diabetes as far as you're concerned, and it's Pre-Bolus, don't let a spike happen. Understand the impacts of your food. But then right after that, when I say like, stay flexible. I think what I mean by that sometimes is like, you know, kind of go with it just okay, this happened. Let me keep working. But it half of that is Don't stare at high blood sugars. Like that's the biggest thing. Like, I watched art and try to do something yesterday. And she's home from school for the holidays. And I kept she's like, I have this, like, let me do it. And I'm like, that's fine. So I let her do it. But four hours into it. I'm like, I could have fixed this two hours ago. You know what I mean? Like, and I see what she's doing, but it's, as she's doing it, am I good? I ain't gonna work. And so I kind of find a time to walk into a room and I was like, Hey, listen, you know, I've seen what you've been trying to do. And I understand why he did it that way. I'm like, that's not going to work, you're gonna have to do this. And she loops and I said, You got to open the loop. You got to make an aggressive Bolus. And then we got to close the loop again to stop the low, right. So she does that she actually Bolus more insulin than I would have done. She created a fall inside of 30 minutes. And I kept an eye on it was later at night. And she was up and I sent her a text. And I said, instead of saying, like, close the loop, I said, What do you think? Does it look like it's time? And let her decide. And then she closed the loop off the loop, the algorithm kicked back and shut off the basil caught the blood sugar. And she was like, I mean, I can look. But she was super stable overnight. Yeah, so the drop happened. It fixed itself around 230. And she's been like 90 for the last 10 At least eight hours. Anyway, it's everybody's got to find their motivation, and their style. And you know, and then just, I think then the hardest. It's all that sounds hard. But then the hardest part is after you figure all that out, it's applying it over and over again, without getting just burned out by the whole thing. Oddly, it's like your job really is right? You just keep feeding those papers and that scanner, like, alright, I don't want to do this today. But this is the job and then you do it. And then you look for ways to be engaged by it. Is that right?

Mike 43:32
Yeah, yeah, I think so.

Scott Benner 43:35
All right. Well, if we could pay everybody for diabetes will probably make them more engaged. Do you think just get it? There you go. I get behind that get a nice hourly salary for taking care of yourself.

Mike 43:46
24/7 365 jobs. So

Scott Benner 43:49
like, do you think that would work?

Mike 43:53
Think about probably not, well, no. I mean, even when I was a kid, like I remember my mom giving me like a list of like, it was like a packet of meals that I had to go through and like calculate the carb counts of everything. And I think it was like, I don't know if it actually was, but I think she told me it was like something for her work. And she was like, Oh, I'll pay you to do it. And I feel like the real mastermind plan behind it was like if I could just, you know, pay him to learn more about carb counting. But the money wasn't worth it. Or not not worth it. But

Scott Benner 44:28
Mike was the juice not worth the squeeze?

Mike 44:31
Yeah, there's the idiom. I love that one. That's one

Scott Benner 44:34
of my favorite ones. Why do I love that one because it was taught to me by Charles, this big, very Italian man that that whose son played baseball with my son when they were in high school, not for their high school, but for their travel team. And we spent a number of years together. Standing in the outfield watching our kids play baseball, and he would say stuff like that all the time. He's from from, from the city from one of the boroughs and he'd be like, pow, let me tell you, the juice ain't worth the squeeze. And I it's not what he sounds like, but I'm just approximating it for you. And it's just delightful. It's so wonderful guy. I'm going to tell some story here. That is because you're on and because of what you said earlier. I've never been mean to a child on purpose Mike.

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I've never been mean to a child on purpose Mike. Except for once to get started. And and I want to be clear, this was never to the kid's face. And the kid never knew about this. Never. But my son played baseball with a kid. And again, I've never met a kid that I like it's hard to dislike a child. Do you know what I mean? Like it's just it just it is and and um probably started knowing this kid at the end of middle school, so I don't know how old they are, they're like, ninth grade eighth, ninth grade right there, and all through high school right into going into college and actually, still was tangentially aware of them in college. And the and the, the kindest thing I can say about this person was that he was a dick. He just someone told this kid, I assume, hourly, how wonderful he was, and how everyone else around him was subpar compared to him, either that or he had a significant mental issue, I don't know. But this person believed in themselves in a way that was unwarranted, and, and cruel, to the point where my son said one day that he could hit a ball and got thrown out trying to stretch a single into a double, which he would frequently do get thrown out trying to make a double into his triple A single to double the gauges, just always cocky. And anyway, the kid gets thrown out doing this comes into the dugout, everyone's pretty quiet. Because I mean, it was an obvious situation where this was just a single, like, you would never go to second on this. And he comes in, and he takes off his gloves and his puts him in his helmet, slams his helmet down, turns the everyone in the dugout, and goes, I'm better than all of you. And then just walks away. And that is but one small example of the dickish pneus of this person. This happened constantly, I once saw him hit a legitimate double. He's running the third even though the third base coach, he just has his hands up going stop, go back, like this is not a triple you and boom gets, you know, gets thrown out at third, I swear to you after the fourth time that happened this summer, the kids slides into third gets tugged out. He stands up and the coach goes, What are you doing? And the kid goes, you like like this was the kid, right? So one year, the kid decides that he's so good, he's gonna go to this out of state camp where he's obviously gonna get drafted from because this is how he feels, which by the way was never gonna happen. But he goes to this thing, it's one of these things you pay money to go to, it's not a special thing. It's if your mommy and daddy have money, then you can do it. And he went and did it. And he came back with batting gloves that had the American flag on it. And that is when myself and the other parents started referring to him as Captain America. And then Superman. And then one night, on a Friday night when we got stuck with the last game of the day. And it's 11 o'clock, and the kids are still playing. And we have to be back again at like seven o'clock in the morning. He comes to the plate. And one of the guys pulls out their cell phone and plays the orchestral music from the first Superman movie, Dan, Dan intentar. And like no one knows, but us it's just we're literally we're out in right field. There's no one within 100 yards of us. We're just hiding watching this game. And we just start snickering like little girls. And then it became a habit where we would find big important music to play as this kid walked to the plate and then like children, we would laugh. And I believe that the the the Olympic music, the thrill of victory and the agony of defeat was the funniest one for some reason. They're dead and dead and just have to imagine his kids just you have to you don't know him and I can't but he would stand up so straight, like two straight. And he walked with his chest out. Like like that he just anyway, he was just a deck. He was he was a child that was a deck and I always thought like, Oh, I hope this like not I hope he goes to college and, you know, maybe finds himself or relaxes a little bit. But no lie in my son's senior year of college. They ended up playing him. Same attitude. Same person just kept going. And I was like, wow, that's who he is. It's fascinating. He's a deck. So I don't know I just at some point that had to be put on the record somewhere. So here it is. I just put one kid in the I've never met another kid I didn't like and it's not even that you don't like him. You just you can't root for him. I don't know if that makes sense or not. But um, he's like his worst his own worst enemy or something. Anyways, the opposite of you. You seem delightful. Alright, so hey, I

Mike 54:41
got a delightful.

Scott Benner 54:43
You are delightful. I want to dig a little bit into the Medtronic thing. So you said you got 670 G right, the automated version you're using their thing. It didn't go the way you expected. Why is that?

Mike 54:58
I'm not a very cool sistent person. So having it like an automated black box, change all your settings and do everything. Like if I'm active one week, go into the gym bike ride. And then the next week I'm sitting on the couch like the algorithm doesn't know how to handle that, or like, one day I'll have 300 carbs the next day I'll have 30 carbs. So like if your Basal is more like, not where it actually should be, but because like you can't actually set the Basal on that one, like it takes care of itself. So if you're eating more fatty foods, and not putting the fat in to the cart Bolus, then it's thinking that you're going to need more basil. And then the next week when you're not eating as fatty foods, then you have too much basil. Okay. And the sensor also just, I don't know if it was, it might have been a problem with me not calibrating it correctly, like not calibrating it at a flatline. But also, it's hard to have a flatline a lot of the times, so like it's always going up and down. But with that, when you have to calibrate it, then it's not like you can wait until you get a certain line, it yells at you at three in the morning. And unless you just turn it off.

Scott Benner 56:16
I have to say that anything that is set up to wake me up at three o'clock in the morning, do something doesn't seem well thought out?

Mike 56:22
Well, it may just because like it has an error or something. Or, you know, it's got to be like every nine hours and like if I don't time it right, or I think it was like every 12 hours, it claimed it was every 12 or 24 hours, but it was always way more than that. Like it would say you have 12 hours until your next calibration and then like six hours later, it'd be like, You need to calibrate.

Scott Benner 56:45
Do you do you find the experience with Dexcom to be better or different, or

Mike 56:53
what insanely better, okay, but it's also like, because I started with like Dexcom. As soon as I got that I was like, because I was a little hesitant getting it because it didn't work with my pump. And even before the six, seven D they had the, I forget what they call it, but like it stopped to your Basal if you go if it thinks you're gonna go low. And I like typing that safety feature in it. Of course, when the six seven D, like does calibration errors or overnight or like, it'll just turn that you'll it'll kick you out to auto mode, and it won't turn on that safeguard. To stop your Basal.

Scott Benner 57:26
Yeah. So you think you have to say that you have to safeguard your mind. Like I'm sleeping, at least it'll like sort of like control IQ had Basal IQ first, where are they? Yeah, it was just Its goal was really just not to let you get too low. And then but um, but the problem is the Medtronic would kick you out of automation, if it didn't like where it was. And then this protection you thought you had didn't exist.

Mike 57:48
Yeah, but so as you know, it has a tint going over your Dexcom because like I wanted it to talk to my pump to prevent me from getting low. And I realized, you know, Dexcom can't do that. But then I started looking at I was like, alright, well, how do I at least see the graphs of everything like side by side. So that's when I found tide pool. And then from tide pool, I found loop. And loop it's like, you know, what you tell it to do? It

Scott Benner 58:15
does it shows you everything that it's thinking it's, it shows you like this is what this is how we think your blood sugar is gonna go in the next six hours. Yeah, you don't like the way you're talking? You can fine tune everything. You the way you're talking makes me think to say something I've never said before, which is loop feels like automation, that you're a partner? And if Yeah, if you want to be I mean, you can set it and leave it if you want. But if you want to be a partner in it, you absolutely can be.

Mike 58:45
And you can also go back and like look to see kind of why it made a decision, it made a decision. It's not just this little black box, like you can't even I don't think you can even see like what the basil is we're

Scott Benner 58:58
okay, yeah. And on the pod five, it's a similar idea where they want it to be very automated, and kind of happening in the background. I think it works for who it works for. You don't I mean, and

Mike 59:09
I think if you're a consistent person that it probably works great. But if you're not,

Scott Benner 59:14
I also have to hope. I don't know. I mean, I'm not a computer engineer for certain, or software engineer, but I have to imagine that these are really the first generations of these things. And it does make me wonder what it'll look like in five more years. You know, like, will it be able to, excuse me? Like, will it be able to sense something and just ask you on the screen, like, are you inactive today? Yes or no? Like something simple like that. You know, I'm noticing like, you would think the algorithm could see that you need more or less.

Mike 59:53
And I like how like, I haven't used Android APS but on there like it'll tell you like if you're You're more sensitive or less sensitive than you are previously, so then you can look at it and be like, Okay, I need to increase things or decrease things. And it'll do some of that automatically, I think.

Scott Benner 1:00:10
Yeah, I mean, that's, that's the stuff I'm talking about, like, I mean, they have to let

Mike 1:00:15
you know, the FDA gets involved in and then pushes, like anything they wanted to do, like, you know, tide pools coming out with their, their version for I'm assuming it's still gonna go on me pod if that ever happens, but like, I think the I think the app that they're trying to push through the FDA is like what Luke looked like four years ago. Like they can't put like, I'm using LWC dev now. And like, they can't put remote control in or a bunch of other stuff. Yeah, God Oh, Bolus and like, they got to taper it down enough to get it through the FDA. And then it just, you know, the whole hashtag, we're not waiting movement

Scott Benner 1:00:55
started to wait when it got to the FDA. We're not waiting tide pools, like we're gonna take this and we're gonna go through even when they settled, I was like, how's that gonna work? Okay. I thought, good, go do it, you know, but now, like you said, it's been years. Right? And it, it's not here yet. And I'm Arden's not using the same version of lupus, she was back when they made that. So they have to take some version of the app and say, This is what we're going to send to the FDA for them to judge. You can't keep adjusting what the algorithm does. While you're in that process. Once you're in that process. That's that. What version of

Mike 1:01:34
30 have oh, sorry, go ahead. No, I just didn't like because like, you know, Dexcom g7. Like it's going to be from your episode. I think he said, like, mid 2023, like mid next year for tandem. And like a little later for Omni pod, whereas it already works with loop.

Scott Benner 1:01:51
Doesn't really seven, I didn't even know. Yeah.

Mike 1:01:56
Well, you like it's got to be looped up at like one of the more recent ones. And I think you have to go in and do a little more tweaking, but but you can get it to work.

Scott Benner 1:02:05
Yeah. And and more quickly than you imagined, it will just one day, they'll put out a version. And they'll just they'll be like, here you are using the GSX or the g7. You just tell it and that's it, and then it works. Well, that's the idea of I mean, that's what happens when you put software engineers on to something. And they have to make sure it works. But they don't have to send it out to somebody else to say yeah, you're right, that works. So what what version are you using right now of loop?

Mike 1:02:32
I'm using loop Dev, but the one in the build the fixed. Fix Dev, build script, Nick, it's called?

Scott Benner 1:02:40
Is it? So like? Good?

Mike 1:02:43
So Luke three. And then I'm also using John facets patches.

Scott Benner 1:02:50
Why did you choose those,

Mike 1:02:52
just because I like a lot of the features they have in them, like it'll switch between, like, depending on what blood sugar you're bait, or what your blood sugar is, like, if you're if you set that to 110, you can have it anything under 110. It'll just do auto boat or auto Basal, anything over 110 it'll switch to auto Bolus mode. That way, it'll kind of be a little less aggressive when you're at a lower and you don't have as much time to catch like too much insulin. Oh, I

Scott Benner 1:03:18
love that.

Mike 1:03:20
There's also a Basal lock feature so you can have it so like if you hit whatever you set. So if you set it to like 220 that means it won't cut your Basal off. If it's above that number. It'll just keep it on and like once you're under that number, then it'll cut it off.

Scott Benner 1:03:34
You know, I feel like I just got an email from him the other day his kids using Omni pod five now.

Mike 1:03:39
Yeah, doing really well on it here. Yeah,

Scott Benner 1:03:42
it's funny. This is the that I'm aware of I'm sure it's happened more than this. But then I'm aware of like a handful of times where somebody has been very involved in the looping community and really helping with it, you know, and then control IQ comes out one of the people's like, Hey, listen, I'm putting my kid on control IQ. And then that and then that's it. That person like kind of disappears out of the community. And then I mean, I just set John up to be on the show, I think. So to come on and talk about it. But But But what you just said is amazing, like switching between Otto Bolus and like basil instead, depending on the the blood sugar is kind of genius. Because like one of the problems we have. What in the hell excuse me, Mike, this is unconscionable. Why would that happen? Thing Nevitt I've owned this phone a long time and I don't know how to use it. One of the problems Arden's had you know it happens a handful of times a year as you can get into this situation where you're fighting a low and you got it and then it starts to come up but it's been one of those days where you've just been low, you know what I mean? Like you just don't need as much as usually need. You finally get the blood sugar to like kind of stabilize and it rises up a little bit and hits, I think Arden's thresholds are like 90 or 95 on loop. And then you get to 95. And it sees a rise, and that Bolus is in auto Bolus. And you're like, No, like, don't do that. Not now, not today, you like

Mike 1:05:16
it with with the patch two, there's another feature that helps out with that a lot called negative IO B factor. And you can go into the settings and tell it to only count like, whatever percentage of negative iob that you want. So like if you stop your basil, if your basil leaves two units an hour, and you stop it for a half hour, your iob is a little less than negative one, like at the end of that Temp Basal. Okay. But if you set the negative IB factor to 50%, your negative iob will only be negative point five. So then it won't try to give you as much insulin.

Scott Benner 1:05:51
Yeah. Well, I What I've learned to do in that scenario is just say like, like turn off micro boluses. Without carbs, until you find some stability, then we'll put it back on. And that

Mike 1:06:02
free APS has that setting. Yeah, which isn't in,

Scott Benner 1:06:05
right. Yeah, right and aren't using free abs. But the truth is, at this point, there's so many different versions, I don't even know what to do anymore. Like, wait, maybe there's a better version I could be using, I don't even know how to know that at this point. So you're using it on the pod or using it with what kind of pump.

Mike 1:06:24
I will I started out with a Medtronic because I had one in my drawer that I worked with. The nice thing about having met tronics for 20 years. But then I switched to Omnipod. More. So just because I was worried about the warranty situation. Like if this pump breaks, I don't have a replacement for it, I can't get it repaired really. So then I started using arrows, and I didn't really think I'd care much about the tubeless feature. But then like six months later, Thanksgiving came up. And it was like I kept hearing people talk about the tunneling, like for too big a boluses. And like, Alright, I'm gonna put my Medtronic back on. And those were the most annoying three days of like, my pump going everywhere and having to take it off, put it back on. Getting caught on things. Yeah. And like, I guess, like, well, when it happens for 18 years, you just kind of deal with it, you don't really notice it. But then having six months without that, and then going back to it, it was like, Oh, this actually is a huge improvement. I've tried dash and I like like, I would like to move to dash, but it's billed as pharmacy instead of DME. And my insurance, the way it works like it's way better for DME for me.

Scott Benner 1:07:34
I'm at the point now where I'd like to move out into loop with Dash. And

Mike 1:07:40
you can keep using free APS with dash right now. It's a different version of it. But it's still free P for APS, it should look almost exactly like what you're using now.

Scott Benner 1:07:52
Is it a stable bill? Yes. Yeah, I might have,

Mike 1:07:56
it's the exact same thing, just with Dash added. I think there's a couple other bugs that are fixed or something. But

Scott Benner 1:08:03
I don't want to send her back to school with a prop with something that she wouldn't know how to deal with. But at the same time, this is

Mike 1:08:12
I posted a Dr. We tutorial thing a while ago. Yeah. So like you can remotely install it on her phone to I've actually got even when she's in Georgia, like you can just remotely update it or

Scott Benner 1:08:25
Yeah, Mike, we're supposed to say Chicago, she goes to school in Chicago. That's what,

Mike 1:08:30
that's what I said. Right? Yeah.

Scott Benner 1:08:32
And interestingly enough, Kenny just sent me that same thing. And he any and he's like, you know, you can just do it remotely now. And I was like, really? Like, that's crazy. Yeah, that sounds good. So that's what I want to do. I just need to find the time to sit down. And I mean, I am assuming all I really do is just rebuild the app and then restart a pod with dashboards. And that's it. Yep, yeah, it does. What do you know about? So here's the thing. I put up a post the other day on Facebook. There's two things I want to talk to you about before I let you go. I put up this thing on Facebook. And I was like, tell me something you don't know. This is like the most popular thing I think I've ever posted online. It's just been seen by Oh, your Heroku thing? What? Yeah, yeah, because I don't understand it. I know I have a Heroku app or page. I know I pay for it. For the life of me. I don't know you do. Really? Yeah, they made me start paying for it. For the life of me. I don't really know what it does. I know it's, if I if I didn't have it, I wouldn't have Nightscout. I do like Nightscout. And so like, I don't know, like I don't understand. I've never done a thing I don't understand before as much as this.

Mike 1:09:50
So like Heroku is basically it's the website that hosts your Nightscout app. And then do you have another Yeah, MongoDB like on another website holds all the database. So Heroku or the Salesforce that people who own them, they decided they can't keep the free tier anymore. So then they had to, like now it cost $5 A month is the minimum you can do. So the easiest way is to just pay that $5 a month, and then you don't have to do anything different. Heroku just keeps working with your NetScout. or Now there's also as soon as like the Heroku started, like announced that they were going to start charging $5 A lot of people started to look at other websites that could host it instead of Heroku. So like I've moved mine over to Google Cloud now. So that'll that'll just be free. And then I also with Google clouds, nice because you don't have to go back and clean up the database. Because like, with Heroku, or with the Mongo DB, you're limited to half a gig, I think. So once you have like, you know, every six months or so you gotta go back in and clear the data. ON CLOUD one, I don't even know you really not do that.

Scott Benner 1:11:12
Yeah, I'm fascinated that you're saying that. I was like, Oh, is that a thing? I'm supposed to be doing that I'm not doing too. Even I don't

Mike 1:11:18
if underpinning if it's working, then I guess it doesn't? Doesn't matter. Yeah. But under penalty

Scott Benner 1:11:23
of death. I've seen the word like the word MongoDB. before. And I even feel like I know that if I tried to log into it. I have a way to save your password somewhere. Yeah, but I don't know what it is. And I, but but I don't know, I just listened to somebody. They told me like, do this. I did it. And it works. And it works amazingly. But I mean, that's the part of it. Like all of that is where this gets like sketchy. Like for people coming in trying to like, Oh, I'll try it. But then you're like what you just said, I know makes sense to you. But as you're talking my brains, like, I don't know, it sounds like there's an app. That's Nightscout. It has to be put somewhere. It has to exist somewhere. And then I think well, how come I can't just build it in the Apple Store, like in Xcode like I do with the app for the blue. Like, why is that not okay? And then

Mike 1:12:18
it's got to be, it can't run on your phone, it's got to run like somewhere in the cloud. And like it, if it's an app, it's got to someone, like, if someone put it in the app store, they'd have to pay for their own big giant server for everyone that runs Nightscout. Okay, so this way, like you're just building it yourself. That way someone doesn't have to hold everybody's like, there are some websites that, like, there's a couple. What did you call them like monitored? That's not the word. It's got it set to like, are just for web or just for Nightscout. Like, so you can set it up, and they take care of all the database work stuff behind it.

Scott Benner 1:13:00
I mean, you think, Well, if you switch to this, because people have come on people like go to rail, is it railway?

Mike 1:13:05
Yeah, railway is nice. It's probably the easiest one to switch to.

Scott Benner 1:13:10
And then I'm like, I don't know, like, what what if that company goes out of business? Or what is it like, you know, you like?

Mike 1:13:16
And then you got to switch to a different one or Yeah, that's also why I didn't go with real quick, because I'm not really sure what the future of it is where Google's not gonna go away. Like, I suppose they could get rid of the free tier. But if that happens, I'll figure something else out.

Scott Benner 1:13:29
Yeah. See? That's because you understand it gives you Well,

Mike 1:13:33
I know where to go online to find other people that understand,

Scott Benner 1:13:37
oh, well, that's probably better than understanding yourself. I, I just feel bad. When I ask people questions. I'm like, I don't know what to do. Can you help me? Like I feel badly about it? But I think you know, in the end, I do talk about it on here. So it does, it does get the word out. So I guess it's a fair trade. But I just I keep thinking about in the future. Like, you know, I mean, this aren't going to have a Mongo DB when she's 30. I bet she won't. So anyway, I like the way that it's progressing. So So you're telling me right now there's a version of free APS for dash that stable?

Mike 1:14:17
Yes. The problem is that free APS like it won't keep getting updated. Like it'll, right now it's at a point where, like, they'll keep like, when a new version of iOS or Xcode comes out. Maryann will go in and do like, she'll try to keep it updated so that it continues to work and stuff, but there won't be other features that like it won't improve at all from here on out. And if something happens with the new version of iOS that breaks it, like not going to spend a lot of time to fix it. I see. So really, I mean, it really I think most people including you should just just move over to the well, like like, by the time this comes out, loop three will should be out on Last year, hopefully,

Scott Benner 1:15:01
you think that's the way to go. Loop three.

Mike 1:15:05
Yeah, which is what loop Dev is.

Scott Benner 1:15:09
But right now, if you if you like, go to the if you go to any if you'd like Google loop three right now, don't do it later because like I said, this will be six months later. But it the way it reads on the, on the on the GitHub document, it's like it says right now, like this is being tested by experienced loopers right now. Yeah. So it's still in the in a beta phase.

Mike 1:15:33
Yeah, but I mean, I've been using it since March, I think, okay. And I haven't had an issue with it. But I also like, I keep tabs, like, I'm always in the loop group, and I'm part of the loop and learn group. And then I'll check the zulip Every once in a while, where it's like more than the actual developers hanging out there. So but then also like, like, it probably won't really matter, because it'll be six months in the future. But there is a version in loop docs called fixed Dev, I think, where it's where Marian like, froze loop dev at a certain point. So she's like this, look at this version right now, like is fairly stable. Like working well. So then, that's the version that you'll download just from that. It's like a build script works the same way that the master build script does. And you're so then you're like, Oh, I'm sorry, you won't keep getting the new update stuff like so when they keep putting new stuff in. And they're like, because if you just take the very newest version of loop dev every time, you don't know how much that's been tested, you don't really know if there's something that might break the app that gets added to it. But if you use the fixed Dev, then there's nothing added to it anymore. Like that's just where it stops for some time. They're unstable. Yeah. So and if something comes in, and like a bug comes out, and they're like, oh, this actually does affect the, that version too well, then they'll both go in and look at the options and update that script to download a version that that bug would have been fixed. And

Scott Benner 1:17:09
but even if that happens now with this new like, I forget what you call it earlier, what Kenny was telling me about but But if, yeah, if so if something happened to the app, and it just crashed, or it had a problem, it's now as easy as putting a link on like a cloud server, sending it to art and having her downloaded to her phone, click on it. And it just rebuilds the app right on our phone. Yep, that's insane. How come we haven't been doing that the whole time. Like, that seems amazing.

Mike 1:17:39
And the one caveat is like it has to be a phone that you've already plugged into Xcode and built loop to

Scott Benner 1:17:44
write you can't just install it fresh with that

Mike 1:17:47
with like, if if she threw her phone off the bridge, and like needed to get your new phone, you like there are ways to get around it to add that phone to your Apple account without actually plugging it into your computer. But it's a lot more clicking around online. And like kind of a roundabout way to find like the specific number of the phone to enter. So it is possible, but more difficult. It's

Scott Benner 1:18:12
interesting. So I'm gonna put you in charge for a second. Should should Artem be using loop Dev. The loop three.

Mike 1:18:22
Yeah, I think as long as I mean, as long as you're active in the diabetes, like online community for loop blooped. And like so if there there is a bug or something catastrophic that comes up like you would see it. Other than that, like I for you, I would say yeah, like, you know, look well enough, like, better than anyone else really. So like, if something's not working right on it, I feel like you would see it and realize, but like I said, since March, I haven't noticed anything really.

Scott Benner 1:18:54
So you haven't rebuilt the app in nine months?

Mike 1:18:58
Oh, no, I rebuild that a lot. But, um, the well, the version I'm using now, I think is from like, two months ago. Okay, that's when it stopped getting updated. For the fixed one.

Scott Benner 1:19:09
Yeah. And so you do you think it's getting close for them to say this is a like a stable version?

Mike 1:19:16
I hope so. But I'm sure it'll probably go to like a release candidate where like, they're like, this is the version we think passes all the tests, and then that'll sit there for a little bit. And then though, as long as they don't have any problems with it, then we'll move that to master.

Scott Benner 1:19:30
Yeah. Hey, can I can I move her to a version that supports dash and then four months from now remotely move her to loop three?

Mike 1:19:47
Yes, Inchon Yeah, you can do that. It'll be a little more difficult to move her back to free APS from three. But I think it's just basically you have to make sure everything's uninstalled on the phone.

Scott Benner 1:20:02
Just like to take the app off it completely.

Mike 1:20:05
Yeah, there might be another step or two that you have to go through. But that'll be in like loop docs, he could find that or message me and I'll figure it out.

Scott Benner 1:20:15
Interesting. So if so if I went through a version right now that was dash compatible, but wasn't loop three, which version would I be looking at?

Mike 1:20:27
If you don't want loop three, you still use the fix dev build script. But that script has free APS dev in it. Okay. And that's step B, which basically what you're using now free APS, except with Dash support added in,

Scott Benner 1:20:42
got it. And that one's pretty people seem pretty happy with that right now. As near as I can tell, from people talking online.

Mike 1:20:51
So yeah, well, I think like I said, we're like the people running loop docks and like, trying to push people more toward like, if you want to use dash, especially if you're an experienced user, or Looper to move towards the loop Dev, just because it's, it's what everyone will move to, to and hopefully, once it's released as master, it's interesting. Three, APS will eventually die out.

Scott Benner 1:21:18
I think that very few people listening to this understand what we're talking about.

Mike 1:21:25
That's a good chance. Because I also tried to, I tried free APS X. And like, February this year, and it's so like, it runs off the same as like the open APS or Android APS, like off that same base algorithm. But developed by Ivan, the same guy who created free aps that you're using. But it was still pretty early on in the development. So it was neat and interesting. But then as soon as the Russia stuff happening, he can't really update it since then. Right. So it's just been kind of sitting there stagnant. So like, once that, like, once the rest of the situation kind of figures itself out, or like once he can start pushing updates to it. I might try that one again.

Scott Benner 1:22:14
I feel like we should smuggle him out of the country and get them here. Seriously, every time I talk to somebody, I'm like, I don't know who Ivan is because someone hire him, please. What are we doing? Go get them all from a job for God's sakes. All right. Okay. Is there anything we haven't talked about that you want to because I have one last thing for you?

Mike 1:22:39
Oh, maybe I mentioned a new bus. Have you heard of that? A new bus, a new bus. So it's made by it's made by people in Australia. And it's a Dexcom transmitter that they've like, drilled into and modified the firmware on. So that sensors don't end. So like you can just keep it running. You don't have to restart it, really. And then it also puts the warmup time down to 15 minutes. And it comes with a battery that lasts. I think I got mine in like sometime early this year, and the battery is still going like I think the battery is supposed to last six months instead of three months. But then you can take the battery out put a new one in

Scott Benner 1:23:24
that I've seen people do I've seen them like dig into it, pull the battery out put another like put like hot glue over top of it to hold it in something like that. Is that the kind of thing you're talking about? Yeah, basically. Amazing.

Mike 1:23:38
Then you can just have one transmitter, and that'll just keep working. And then the restart thing is what's really helpful then, like I had a sensor on that lasted 30 days, and was still like within 10 points.

Scott Benner 1:23:50
It was just what I use. Sometimes it was just one

Mike 1:23:53
drawing like normally I get like 14 days and then it starts getting noisy. So then I pull it. I really wish g7 just lasted 14 days. Like I can't wait until they get to that point.

Scott Benner 1:24:04
I thought it was going to I thought that early on. That was the chair and

Mike 1:24:08
then I think there is something with like the adhesive like they had problems getting it staying on everybody for 14 days without making the adhesive too crazy. Yeah, but libre has been doing it for a while. So I don't know why.

Scott Benner 1:24:22
I imagine it comes eventually. So I don't know. Okay, my last thing for you. You left a review for the podcast. That was the it was the most like thoughtful and lovely and then cake made me cringe and it made me laugh and I just I very much appreciate it. Thank you. I've never read something that took me aback. It's only a paragraph and I'm started reading it. Now I got to Google. I don't know who this person is, like Google. I'm like, alright, that's who that is. And then you said something that I was like, Oh, I don't like don't don't Don't compare me to that. Like that made me feel really? Yeah, I don't know. It's just so funny. But I there was

Mike 1:25:06
a lot of parts of that. I was like, oh, I should take that. No, maybe I'll leave it in, like I almost rewrote, or like, deleted that and read it a couple times. So I'm glad I left it there.

Scott Benner 1:25:15
Yeah, no, I'm glad you did too, because I feel like most people who read it, we'll just pick I don't know what this means. Exactly. But I, I was, I was just very, it was heartwarming, and, and it made me feel weird at the same time, which is how I know I liked it. But I appreciate you. I appreciate the podcast being valuable for you in a way that made you think to write that. So

Mike 1:25:36
I think I've got 105 episodes left. And then I'm all caught up.

Scott Benner 1:25:40
I'm thinking of giving out an award for people who listened to all of them. Now, it'll be it'll be a digital real award. I will not be sending a trophy to your house. You know, the trophy might that you never won playing baseball.

Mike 1:25:54
Are you the trophy?

Scott Benner 1:25:56
Am I the trophy? I am nobody's trophy that's for sure. No one would get me and go. Oh, I feel very accomplished right now. No, I just, I mean, it occurs to me, especially as the as the podcast gets into the eight hundreds as far as and nine years. Like in a couple of weeks. I started that ninth year, but I saw this podcast the other day. So funny. It's been out for like three years. And they're like, we're in the season nine. And I thought to myself, No, you're not. Like, stop it. You can't make a season 10 episodes and then tell me you're that's a year, that's a month. That's two weeks for me. Like I think that episodes in a half a month. And they're like we're in season nine. I'm like you just started in 2000. And like 20, like, What are you talking about? But, but anyway,

Mike 1:26:45
I just we're going back through the podcasts and because of how, like you started off, I think like once a week and then moved it up and up and up. And now it's like four times a week. So like going back through the podcast, it's like the last half of it is like the last two years. Yeah, may not pass. But a good chunk of it is just like since COVID. And then like, as soon as I hit the point that was like, pre COVID. It was weird. Well, COVID

Scott Benner 1:27:08
changed it for me. Because Because I saw overwhelmingly if people heard this already, they can probably you could probably shut this off now. But overwhelmingly podcasters I thought made the wrong decision at COVID. They, they they were saying, well, people aren't going to be in their cars as much. So they're not going to listen as much. So they started making like less content. And I it just struck me the complete opposite way. I was like I'm gonna make more, because I think people are gonna have a lot of time. And that for you? Well, except for me, I'm the only one that didn't get the cruise through COVID. And, and by the way, was up all night on Friday getting you the Dexcom g7. So just listen to it. But that's not the point. The point is that and I also stopped thinking my I stopped thinking of myself as a podcast. I mean, it's a podcast, obviously. But you know, once a week, or some come out twice a month or something like that. I started thinking about who who is successful in the space of delivering audio to people. Like I looked at those people, those people don't put out an episode a week, they put out three or four a week. And when you listen to it, you might not always be interested, you might like log on on Tuesday and go I don't care about this interview. But I love the one on Monday, and I might like the one on Wednesday. And I looked at that and I thought that's the model for me. I'm going to put out a lot of good content, you're not going to care about all of it maybe and it's there if you want it. And that's just where I went when COVID switched and to your point a minute ago, this year 2022. The podcast is just by a hair's breadth gonna miss 5 million downloads in 2022. So is a big number for people who are not in podcasting this show I don't think I usually say this on the show. But I'm in the 96th percentile of all podcasts that exist. As far as I know all like not even just health. All not just in health actually today in health. I actually have this in front of me because I pulled up I was pulling up your review today in health. The podcast is 134 in health and fitness which is the parent category and that is that's high they only track the top 200 shows to begin with. Like your your charting if you're in the top 200 So I have I have a parent category health and fitness which I'm 134 in today and it pretty consistently stays in the top 200 all year long. But in its in its subcategory which is health and fitness medicine. I'm number 12 Today in and there's some Pretty big podcasts ahead of me, like, like stuff that has, you know, dozens of people working for them. And they are a part of a media company. And like I read down from the top, Peter Atea, who is just a huge help body has Mark Hyman, Rhonda Patrick. Paul Saladino. Like, you know, these are the people Peter McCollum, these Matt Walker, they're the only ones really out of me. And then it's me today. And I guarantee you that they don't make that podcast by themselves. So it's pretty cool. RFK is there too, but I'm not sure of what it is he's peddling. So I didn't. I haven't looked too deeply. I've heard people on two different sides of him. So I'm staying away from that one. But, but yeah, the podcast is popularity is measured by downloads and by new subscribers. So the one great thing about charting is, if you're not constantly getting new subscribers, you don't chart no interest. Yeah. And that's the big deal about being in the I think in the medicine category. I've I've been pretty consistently the top 20 for like the last three years. So anyway, I just want I put content out and if you want it, that's great. If you don't want God, I got it. Like you don't I mean, so you'll be like the one that I

Mike 1:31:23
just don't go look for a summary of it online. Yeah. Because what the, well, the crazy thing, too, is like, your transcripts are on the website. So if they really wanted to just read it, they could just skim it there.

Scott Benner 1:31:35
I also don't think that these people are like bad people who are like, please just tell them like, I just need to know this. Yeah, they don't know my and that's why I I thought, I thought in a joking way, like and and yet, like very like, I don't know, honestly, I was just trying to say like, please understand my side of this. If we all give away what's in the podcast, and nobody has to listen to the podcast, then there won't be a podcast. Like that's it unless you want me to start charging you for the show. And, you know, the truth is, if people did that, I'd make a lot more money, like a significant amount more, and I still don't think it's right to charge you for the show. So I don't do it that way. I guess.

Mike 1:32:17
You'd be making more money, maybe, but you'd be reaching less people.

Scott Benner 1:32:21
Exactly. And I don't want that. I don't want to limit who gets to hear it. Because you can say something. I mean, think about it. The 5 million downloads. What if I charged 10 cents an episode? Just 10 cents? I don't know the math on that because I'm not smart. Okay,

Mike 1:32:38
but I spent $80 This year then, right?

Scott Benner 1:32:42
You're one person. So if I take 5 million? That's a lot of zeros. Okay, so I take 5 million. you to help me on this because I might be wrong. That's 500000. Wait, is that wrong? Six years 50823456 5 million. And I say times point one. That'd be 10 cents, right? Yep. Ah, yes. I would have made $500,000 this year. I want you didn't know I don't make $500,000. So. So just every other year well now. So now think about that. That was 10 cents. What if I just made it 20 cents a download, I would have made a million dollars this year. And instead I take ads. And I let the advertisers pay for it. And you guys don't have to pay anything for it. So it because of what Mike just said like your smart person. Like Like, even if you charge 20 cents 20 cents for something, it will eventually eliminate some people. And then what happens if that's the person who doesn't know how to Bolus fat. And then they spent their entire life with a seven and a half a one C when it could have been a five and a half a one C if they only would have known to put in some more for French fries an hour later. I don't I don't want to. I don't want to think that I'm limiting people from getting good information. Just to make money. Although now that we did that with the calculator, I really would like to charge 20 cents for each episode. I've been thinking about it for a little while. And it's gonna make me a little sad inside but I'm gonna be okay. I'll be like, I'll get past it. But anyway, I just think it's I think it's a it's a it's an endeavor that I like being part of I like trying to help people in mass. And I I'm not telling you that one day maybe the advertisers will dry up one day and you'll hear me get on here and go look, the podcasts cost 20 cents an episode now. You don't like it don't listen, there's nothing I can do about it. But for now I'm I've been able to keep it for eight solid years 800 app episodes, I've been able to keep this podcast free for people. And, and still, my house is heated, you know. So that's my goal. Although I guess maybe I should take a swing at the end. Right, Mike? What do you think? Like the last year go completely dirty, just curse through the whole thing charge like 25 cents and

Mike 1:35:20
oh, I think if you just made a separate one that was unedited, not edited, but like uncensored. Yeah. And then just charge for that one. I think people might buy that you think I could

Scott Benner 1:35:30
do that just curse like, what am I going to record? Jesus holiday time, I might have to get an editor. Let's make enough money that that can happen. Although I also need to, like, I have these people, these wonderful people who help for free with the Facebook page. And that's important too. I need I need more money all the advertisers have to pay twice as much. I gotta I have to start paying moderators online. That's it. I'll call them right now. Let them know the price is doubling. You think they'll be okay with that?

Mike 1:36:01
I think there'll be okay with whatever you tell them.

Scott Benner 1:36:02
I don't think they will. I think they told me to go to

a huge thanks to Mike. Hey, a huge thanks to Mike for being on the show today. And for all he does for people living with type one diabetes. I also want to thank cozy Earth and remind you to use the offer code juicebox at checkout to save 35% off your entire order. And of course touched by type one.org. Go check out the event. Find out the details. And while you're at it, why not find them on Instagram and Facebook and give them a follow. At the end of the music. I have a little note for you for Mike to add on to what he said here. I will read it in just a second. Thanks so much for listening. If you're enjoying the show, please share it with someone else. And give it a follow or subscribe in your favorite audio app.

If you're looking for community around diabetes, look no farther than the Juicebox Podcast on Facebook, a private group with 40,000 members. There's a conversation happening right now that you want to know about Juicebox Podcast type one diabetes on Facebook. I don't care if you have type one or type two. Lada doesn't matter to me. I don't care if you eat keto, if you eat a bunch of hotdogs or potato chips doesn't matter to me how I eat doesn't matter to me, but you do matters to me that you know how to use insulin and you feel supported Juicebox Podcast type one diabetes on Facebook. Mike sent me a note the other day that said Hey Scott, I mentioned I might switch back to free APS X when I was recording your episode. So could you please update people that I did switch back, except now it's called AI APs. Anyway, about a month ago, he switched back and he's loving it. He said I opened the app far less than I used to with loop. And now that I switched to loom Jove, which is a faster acting insulin. I'm sitting 98% of the time in my target range of 70 to 180. Prior to that, he was sitting at 90% Since he switched to Dexcom and loop to two years ago for two years. He was Dexcom and loop two. Now he's using something called I APs and see him better time and range. And Mike just wanted to let you know. Alright, everybody. This was a good day. I'm feeling good. I'm gonna go check out my movie. I am seriously gonna go put on my joggers. And I'll let you know how the movie was later. Even though I didn't tell you what movie it is. You guys can wonder what movie I went to say. Hey, go follow that Facebook Group. Subscribe and follow the podcast in an audio app. Share the show with somebody else and except my thank you for doing all of that. I'll see you very soon. When I'm back again with another episode of The Juicebox Podcast


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#943 Campfire Stories

Scott Benner

Nancy's daughter has type 1 diabetes.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 943 of the Juicebox Podcast.

On today's episode of The Juicebox Podcast, I'll be speaking with Nancy. Nancy is the mother of three, one of her children has type one diabetes, the others have other issues that we'll talk about briefly. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin. Don't forget to check out the private Facebook group Juicebox Podcast type one diabetes, there's over 40,000 members and the conversation is happening right now that you may be very interested in. You can get five free travel packs in a year supply of vitamin D. When you go to my link athletic greens.com forward slash juice box. That's right start with ag one today and get those five free travel packs and a year supply of vitamin D at my link athletic greens.com forward slash juice box and you can save 35% off your entire order at cozy earth.com. Just use the offer code juice box at checkout. bath towels, bedding clothing cozy Earth has it all. The podcast is sponsored today by better help better help is the world's largest therapy service and is 100% online. With better help, you can tap into a network of over 25,000 licensed and experienced therapists who can help you with a wide range of issues. betterhelp.com forward slash juicebox to get started, you just answer a few questions about your needs and preferences in therapy. That way BetterHelp can match you with the right therapist from their network. And when you use my link, you'll save 10% On your first month of therapy. You can message your therapist at any time and schedule live sessions when it's convenient for you. Talk to them however you feel comfortable text chat phone or video call. If your therapist isn't the right fit for any reason at all. You can switch to a new therapist at no additional charge. And the best part for me is that with better help you get the same professionalism and quality you expect from in office therapy. But with a therapist who is custom picked for you, and you're gonna get more scheduling flexibility, and a more affordable price. betterhelp.com forward slash juicebox that's better help h e l p.com. Forward slash juicebox. Save 10% On your first month of therapy.

Nancy 2:47
I feel like I'm meeting a celebrity. Oh, well, you

Scott Benner 2:50
obviously are. You're not meeting a person who just went downstairs and had to mop up dog urine because because this dog is 15 years old. doesn't know when to give up. That's not what's happening here at all. Yeah. Now. You're not talking to a guy who was just in his kid's room shaking or going. You said to get you up. You said Yeah, yeah, I'm famous.

Nancy 3:16
I'll say this year I get to talk to you last year. I got to meet Dr. Stephen ponder. Did you really? Yes, yes.

Scott Benner 3:22
Were you in Texas or was it somewhere else?

Nancy 3:24
No, he actually came and spoke to a group in my area. I live in Georgia. Okay. My Endocrinologist, Dr. Hutchins is in Macon, Georgia, which is about middle of the state. And she did some just sort of a family day with some vendors. And he came in he was our speaker and had some activities for the kids and things like that. And he was there. So

Scott Benner 3:48
Oh, that's lovely. Jessica, right. Yes. Love. Dr.

Nancy 3:51
Hutchins. She's

Scott Benner 3:52
wonderful. Okay, well, I apparently my children live on either side of

Nancy 4:00
that. Yes. Yes. I kind of suspected I know that you I didn't feel like in any of the podcast or your post. You're real specific. But I kind of guessed that. Your daughter was kind of in my vicinity.

Scott Benner 4:11
Yeah, yeah. I'm supposed to say that. She's in Connecticut. Okay, so or Chicago or something? That's

Nancy 4:18
it's pretty hot in Connecticut this time of year. That's where she is. Chicago.

Scott Benner 4:24
But my son is in Atlanta, but he's, he's trying to get out pretty quickly. So,

Nancy 4:30
yeah, well, my town is uh, we're almost the southernmost town in Georgia. So I'm about an hour north of Tallahassee, Florida. Oh, wow. So I'm all the way at the bottom of the state. So which is geographically challenging with a type one diabetic because they're rare and big town so especially in rural Georgia, harder to find somebody. So the nearest town Hassey Jacksonville Savannah, Macon Atlanta. So

Scott Benner 5:04
are they great once you get there? Dr. Hutchins is

Nancy 5:07
yeah she is but previous one that we used not so much and unfortunately I spent way too much time with her.

Scott Benner 5:15
Oh, yeah, that can definitely happen. Well speaking time I have perfected the Georgia to New Jersey 14 hour drive.

Nancy 5:21
Oh my gosh. That sounds gross.

Scott Benner 5:24
It's horrible. It has moments where it's worse. To name those moments. South Carolina.

Nancy 5:34
Savannah is a really neat place. That was part of my my husband's honeymoon. We did Jekyll Island State at the Jekyll Island Club then went to Savannah and Charleston.

Scott Benner 5:44
Oh, that's lovely. You know, so Arden was there for a year. And we were picking her up. We're by the way we're recording Nancy. Is that okay? Okay. We were picking her up at the end of her first year. And, like helping her like we actually went and visited our son and then we went to get her and helped her brain, like put stuff in storage and like it was our first time everything. We went to help her out. And Arden has a car at school. So Kelly says to me, I know this is hokey, but let's take like a trolley tour of Savannah. Yes, I was like, okay, so Arden's making fun of us. She goes those tour people just stare at us, you know, and I'm like, I'm like, why won't stare at you already know who you are. And we're on the trolley tour. And Arden's got one more class. One more class to go. And my phone rings. And I'm on the tour, but it's art and so I pick it up. And she is pretty hysterically crying. And she's going Dad, dad, a man, a man, dad a man hit Oh, no, like and I'm like, wait a man hit you on like, wait, what's happening? And she's really upset. Arden's not like real flammable. So I was like, yeah, what's going on here? And now I'm worried that someone's like, like, physically attacked her. Yeah, I'm like, I'm like, calm down. I'm like, what, what's happening? And she's like, I was stopped at a red light. And a guy on a motorized bicycle hit me. I'm like, Okay. And I'm like, are you alright? Yeah. And I'm like, is he alright? She was, I think so he stood up and yelled at me for a while and then ran away. And I'm like, Wait, what happened? Like, so I'm like, calm down. I'm like, if you're, you know, like, you're, you're off the road. She's like, I pulled over and I'm like, okay, and I hear talking to somebody, but I don't get a lot of context for that call. Anyway. So she says, you know, there was this guy on this old busted up like, bike that was, yeah, rised. And he was driving really slow. So like a block or so back. She went around him, she stopped. She stopped at a light and was stopped at the light for a bit and looked in her mirror and thought, but he's coming at me quickly. And then she kept looking and thinking, Oh my God, he's gonna hit me. And she's like, I tried to just like, should I like, pull out into the intersection like swerves. Yes. And a red light or cars next to me. I couldn't really do anything. And he kind of veers the last second and catches the back left corner of her car. But what had her so upset was that he flew through the air pass. Oh, that's her driver's window. And I think that was it like the human body flinging made her really upset. Yeah. So she gets out. She's like, are you okay? And he starts yelling at her. And she's like, wait, what? Why are you yelling at me? Like, what happened just now? And he goes, You can't do that. And she goes, what? And he goes, Stop at like a yellow light. And she goes, you're supposed to Yeah, and he goes, Well, you have to know the brakes on my bike. Don't work that quickly. Well, how are

Nancy 8:52
you supposed to know that?

Scott Benner 8:53
I don't know. That's what she wondered. So then they start yelling at each other, like a little bit. And then he just gets flustered and she's like, are you okay? Like, let's make sure you're okay first. And he gets flustered picks the bike up, throws it down a hill on the side of the road off an embankment and runs away into the city. So she pulls over to talk to me. And later she says to me, I pull over and she does that. Like if you want to know what it's like to be a pretty girl and I'm like, okay, she was like, pull over. And I'm very upset. I'm I have a person in my car with me who I don't know that well. Well, I'm just taking taking her to class. She's like, can I call you because I know you're here. And as I'm getting you on the phone, she goes an honest to god crackhead comes up to me and goes, Hey, you from New Jersey. And she's like, not now buddy. So he's, he's like he's hitting on her in a park. Yeah. A

Nancy 10:01
lot of panhandlers in Savannah. And we call them the woohoo girls, all the girls there.

Scott Benner 10:09
Because you yell woohoo app. Or they're yelling. Yeah. So anyway, she's like, and then I just calmed her down. And then I pulled my parenting hat on. And I was like, listen, you're okay. The car is okay. I'm like, you have a class to go to. It's your last class. You're presenting your project. You to pull yourself together and go to that class. Yeah. And I was like, and when you come out, I promise I'll be standing in the parking lot. Yeah. And so I just, you know, couple hours later made sure I was there when she came out. She told us the whole story. He was laughing. But anyway, you visit Savannah?

Nancy 10:47
Yeah, we used to go almost every year, like whether it was for our anniversary or Valentine's Day or special trip or whatever. We haven't been in a while. The drive from my town to Savannah. While it's not 14 hours, it's long, boring. Nothing to look at all the way there. So it's kind of a boring drive. I'm

Scott Benner 11:07
just gonna tell you that. 18 months ago, I had only ever been to Atlanta or to Georgia. Once in my entire life, maybe twice. And now I feel like I live there. So yeah, yeah. Anyway, it's a it's a nice area, I guess. Yeah. My son does not like Atlanta.

Nancy 11:24
I could understand that. My son interned at Atlanta Athletic Club. I guess it's been three summers ago. And the Johns Creek area lived up there. And his fiancee because he they offered him a job after graduation. And his fiancee was like, I don't want to live in Atlanta. No, thank you.

Scott Benner 11:43
I'm not usually a person to talk like this. Because I live in the northeast and I love driving fast and recklessly at times. But Atlanta driving in Atlanta is

Nancy 11:53
Yeah, yeah. It's a sport. contact sport. Sometimes

Scott Benner 11:57
I've seen to hit and runs, and I've only been to Atlanta three times. Yeah. Anyway, okay. So Nancy, we already know you're Nancy. Yes. You are the parent of a type one or you have type one yourself.

Nancy 12:10
I'm a parent of a type one. Elena.

Scott Benner 12:14
Yeah. Tell me about Elena, please.

Nancy 12:15
So Elena is birthday, ironically, is today Happy Birthday, Atlanta, she turned 17. Congratulations. We just celebrated her 10 year diversity. She was six when she was diagnosed. So I guess, diagnosis story, how we figured it out? Well, are just about her.

Scott Benner 12:38
Like how you're going into like how you're thinking of the big round picture. Let's let's start with, are there any other autoimmune issues in your family?

Nancy 12:46
Yes. So my oldest son who will be 23, in a few months, two years ago, was diagnosed with Crohn's disease. My grandfather, my paternal grandfather, had celiac disease. Both my dad and his dad, paternal grandfather. I know my dad has type two, I've always been told my grandfather had type two. He was insulin dependent, before he passed. And I've often wondered with him having celiac. Was it a misdiagnosis? Or just,

Scott Benner 13:28
you know, was it a late in life diagnosis? Celiac was yes, but his diabetes required insulin was longer. The requirement

Nancy 13:37
of insulin didn't happen until later. So it could have just been I guess the progression of type two was my dad nor my grandfather are overweight, big people as a stereotype we talk about a lot as parents, but I just remember as a child, seeing him with the syringes and some insulin. Not knowing Yeah, blast to the future that that would, you know, be us. But so type two, he had celiac. There's been a few times that I've wondered if my middle child my other son had some gluten issues, but we've not done like true tests, but sort of tried to eliminate diet and stuff. But yes, my oldest has Crohn's.

Scott Benner 14:31
That's a pretty rich history of of issues, I would say.

Nancy 14:35
Yeah. And yeah, I always laugh and tease that my husband and I just created these great medical anomalies. Our oldest has Crohn's, our middle son who's 20 has epilepsy. My daughter who's the youngest seven team has diabetes, and she has seizure disorder as well.

Scott Benner 14:54
Oh, no kidding. How's your dog? My dog? See, okay, Yeah. I didn't know if maybe you guys were like the epicenter of something.

Nancy 15:04
Yeah, no. Whenever David and Elena started having seizures, my mom was like, There's something at your house. You can't go back to your house. There's something going on there. Because Ironically, when their seizures started, it was days apart. So we we both Yeah, I can see how we thought it was environmental. But Elena has not had a seizure in over two years, which is never, in my opinion, diabetic related. She had on a Dexcom I could always see her blood sugar. No testing has ever told us anything about her seizures. We've done MRIs, CTS, the was an EEG, that's the brain. I always get that. But worn monitors, we've done DNA testing, David's they can diagnose and see right where it's happening on the brain, hers not so much. So it's been over two years. And one of her last appointments they are discussing weaning her off her seizure meds, maybe it was the column psychosomatic, not that she's faking them, but there's no, there's physical or physiological. I know what the right word would be reason that they can see why she's having her seizures. So David went through a lot his junior and senior year of high school, and has a lot of mental health struggles with the seizures. And so we're holding off until she finishes her senior year to titrate her off the seizure meds because I don't want her to miss out on senior year if stuff starts happening, and

Scott Benner 16:40
are there side effects of the medication? Yes,

Nancy 16:43
Elena, thankfully has never experienced any side effects that I know of. Dave David, yes, we've had to change a few times he had what they call cap rage from Keppra gives you rage issues. Some of his medicines have caused weight gain, and just the disease itself. And the side effects from some of the seizure meds is a terrible tornado of mental health. grossness, so.

Scott Benner 17:16
That's a lot. How old are you?

Nancy 17:19
I am 48.

Scott Benner 17:21
Okay. Your daughter's diagnosed at Did you say six at six? And how does that come about?

Nancy 17:29
So we just, uh, I can't remember how long we'd had our camper. We were tent campers as a young married couple and then started having our kids went on a few tent camping adventures. And then we eventually got us a little camper. So met my parents at a campground for the weekend to camp the weekend. Elena had had her field day on Friday. And then when school's out, we drove over and went to the campground and noticed that she was going to the bathroom a lot. She was thirsty a lot. But I was like, oh, maybe it's just because we're in the camper. And maybe it's just because I'm having to walk all the way to the bathhouse and I'm just, I'm more aware of it because we're not at home and shit. You know, I'm more involved in your bathroom visits. And then by the second day, like she'd ride her bike, she go down to my mom's camper, which is not very far away. We're a state park. Thirsty, haven't used the bathroom again, back in ours thirsty, haven't used the bathroom again. And my mom and I sat around the campfire. When my brother was younger, one of his friends was diagnosed with type one very similar symptoms to Elena. And my mom said, You know what the sounds like and I was like, Yeah, I was like, but no. Well with my dad and type two, I was like, Well, does he have his meter with him? We can pray? Well, he didn't. My uncle was there. He didn't have nobody had a meter or couldn't prick her finger. So we're just there Friday, Saturday, Sunday, came back home Sunday. And at that time, we lived in Middle Georgia. And I was a ParaPRO and a kindergarten class. My kindergarten teacher my class used to be a nurse and went back and got her master's in education. So I called her and I was telling her the symptoms and she was like, let's just hope it's a UTI. I was like, Yeah, but a UTI. You don't go to the bathroom. You just feel like you need to go to the bathroom. She's gone to the bathroom. Yeah. So we got to school Monday morning. And I asked the school nurse I said can you just dip her urine and see if she has a UTI. And so she dipped her urine and the glucose part on the strip, turned colors. So she pricked her finger, and she was 365. And she's like, You need to call your pediatrician. I was like, okay, so I went out to the car almonds are the school and I was calling the pediatrician I was on hold, telling him the symptoms on hold whites. And she started getting nauseous. And our stomach started bothering her everything. And that's when the doctor told me like, you just need to hang up and go to the ER. Well, even though I'm rural, where I live now, I was very, I mean, I was an hour away from pretty much any hospital 45 minutes to an hour. But all of my co workers, I mean, the principal, the school immediately was like, what do we have to do, she's gone and gather and somebody to drive me to the ER, they're getting my purse, they're getting the latest things. And the next thing I know, the teacher that I worked with, is driving us to the ER my car, and I'm in the backseat with Elena, and she's just reassuring me the whole way there. This is going to be fine. You're you're super intelligent. If any parent can handle this disease, it's you. God knew what He was doing. Whenever he gave a line to you, as a parent to manage this disease, you're going to be fine. So that was the pep talk. I got all the way there may I'm just like, What are you talking about? I have no idea what I'm going into. So we went to the hospital, where her pediatrician is, and it's a smaller hospital. And then I have a I would call it like a sister or like a cousin hospital. They're not affiliated but a bigger hospital nearby that he also has. He can see patients. Yeah. So we went to the first small one because it was the closest and I went to the window and I said I'm here with my daughter. She's starting to feel nauseous. I think she has diabetes. I need to have somebody look at her. She's like, I can't admit you to the ER, just because you think she has diabetes. I'm gonna need you to tell me something else.

Scott Benner 21:51
Okay, I want saw big foot while I was like, outgoing. She's like,

Nancy 21:57
that's just not something I can. Oh, okay. She's nauseous. She's throwing up, she doesn't feel that's what got us in the ER not scared that we have type one diabetes, which is very dangerous. Now I know that 10 years later, it was she's throwing up.

Scott Benner 22:12
That's what what's the tree to human ratio where you are? The what? The tree to human ratio. There's lots of trees, okay, I'm just trying to figure out what I'm talking about here. So you had to drive an hour to get to someplace where nobody knew what they were talking about?

Nancy 22:28
Well, what's the pediatrician that called him from his office and he came over. And my husband's still taught us about this. I don't know if it was a student, or a medical student or a nurse or whatever. I mean, our heads are spinning, we have no idea. We didn't know anybody with type one diabetes, I don't know what I was getting into. She just came up to us. And she said, I just feel really sorry for you. And walked out of the room. And I was like,

Scott Benner 22:55
what? Wait, this is a student nurse. I was either a nurse

Nancy 22:59
or a student doctor, someone on the medical staff. It was not just a random person in the hallway, it was actually a hospital medical staff. And that's nobody has yet even said, this is the diagnosis. This is what's going on. And

Scott Benner 23:15
can I say something? You've motivated me? Hold on a second. Okay. Like we've ever done this before. I want everybody listening to picture 30 people that they know. And then tell yourself, like, go through them. And tell me how many of them are really, really bright people. And let's keep that in mind. While we're discussing how all the things you go to get your tires changed. You need new tires, and the person you're talking to you're thinking like, Oh, God, I'm like, I'm afraid to let them touch my car. Or, but But you know, there's a there's one person at the tire place like you've been there before you like, you know, there's one there that knows what they're doing. But where where is he and you're looking around and you don't see him? You're talking to this one instead? You're like, oh, no, no, no, no, they're definitely gonna mess my car up. Or when you're in a clothing store, and the person helping you seems to be staring at a wall or or you're in a hospital and someone says something to you like that. Like, yeah, I I think we all need to stop being so surprised by this. Yeah, that's all. And I'm not saying I'm brilliant. I'm not saying that. I'm not saying that. There are people out there. I just think there are there are levels of understanding people, people, you know, have different levels of of understanding. Have you ever noticed when you talk to somebody that you can't go sometimes more than like three thoughts deep before use them? Right.

Nancy 24:43
Yeah. And I tell a lot of people through the last 10 years with diabetes. Before that diagnosis, I help medical people and I apologize to anybody in the medical community that's listening. I used to hold them at a higher regard than I do. Now, I absolutely go into a medical situation, especially at an AR, or non endocrinology environment. I go into the environment with the assumption that everyone in there is ignorant of diabetes, and I'm the smartest person in the room with about diabetes. And you're not going to tell me what is right and wrong to do. I'm the boss of diabetes. Also my shut up and let me manage until

Scott Benner 25:28
someone proves otherwise, I'll give you exactly. Because so far

Nancy 25:31
99% of our experiences at a hospital or that type of environment that's not endocrine, they're ignorant. And I'm using that word not in a derogatory way in the uneducated. Oh,

Scott Benner 25:46
it's yeah, I want to say something. And I mean this like, sincerely. I know and love people who are not like, people who can think two or three steps into a problem. I'm not saying I'm not saying there's anything wrong with you, if that's how your mind works, or, like, I'm not saying you're better, if you can think six levels deep into a problem. I genuinely genuinely don't think that I think people are lovely, like, yes, you know, yeah, but there's a lot of jobs to fill. Yeah. And very often, they get filled by people who in an ideal situation wouldn't hold that job. And then you don't know who's who, because you're in the tire store. And your, your assumption is, well, everyone here must know about wheels and tires, right? But that's not always the case.

Nancy 26:36
Right? Yeah. Well, just like so whenever we got transferred to the larger hospital, and our pediatrician was still caring for us. One of the things another just so like, blew my mind. There pricking her finger, we were there for like six or seven days, staying in for obviously getting our blood sugar regulated, but they let us stay for education. kept us admitted to the hospital for that. And one nurse that was our nurse for the evening. When she'd come in to prick her finger to check her blood sugar. She'd put a bandaid on our finger, like stop putting a bandaid on her finger. Like she's gonna have band aids all over. Stop and she would keep putting the band aids on her finger like what do you do and I don't draw blood. You just pricked her finger. If she goes through life putting a bandaid on her fingertip Every time she's testing her blood sugar, we've been covered. I am not bashful. Again. I forgive any. Forgive my edit. Please apologize for my attitude. I have fired doctors and I have fired nurses. In the midst of medical care. I have told nurses to leave our room. I have told doctors that I do not trust their medical judgment and that I do not want to see them anymore. I have told nurses and doctors, I don't think you know how to care for this. I want someone higher than you. I want someone to call my endocrinologist call somebody else. Elena several years ago, broke her leg. And we had to have surgery for it. And in the ER that's all I kept panicking about like you're not even checking her blood sugar. And she didn't have a Dexcom at the time. So it had to be a fingerprint. I understand you're gonna take care of her broken leg. But what about what? The last time I checked it was when we're flying here in the car, and I checked her blood sugar to see where she was. When she was in recovery, her primary care doctor called while they were given him the update and everything and they came to the door in the waiting room. They're like the doctor wants to talk to you on the phone. Okay, and I picked up the phone and he's I understand you're a little nervous about the diabetes care. I said I'm very nervous. I mean, nobody's even paying attention to it. He said how about I write in the records that you make all diabetes decisions and they can't do anything without your okay, I said that would be perfect. And that's what we did for that hospital stay.

Scott Benner 29:07
I want to say to this is not me being like a geography snob I've been in I don't want to say where because they're lovely people, but I've been in some more in a really prestigious medical institution. Where I'm pretty sure that if I would have listened to those people, Arden would have been lucky to have an ad one say yeah, and they are shiny and smart and have degrees from places you would be impressed by. And still that was it. Like I'm not saying it's because it's in Georgia and I know I joked earlier about the tree to people but I just really just looking for a title for the episode. And and but but uh, but seriously, like in any place in anytime and listen, you can go through I mean, you look at all the trouble we seem to have sometimes with policing Yeah. And yet I know police officers that are just salt of the earth, people who do a really great job all day long. And I know we get focused on the people who don't do a good job, right? More often than not, and there's reason for that, obviously, it's important. But if you can get into, and those are the positions, you said it earlier, right, like you held people in the medical field in very high regard, but really, for no reason. Just Chairman just like me. Exactly. But you just assumed well, they went to more schooling than I did. Yeah, they do a hard thing I don't understand. And so they must be smarter than me.

Nancy 30:33
But if you're just a general practitioner, if you're just a general, er, staff nurse, yeah, I mean, you can do trauma, and stuff like that. But I mean, when's the last time you counted carbs? When's the last time you did you know, a corrective factor for insulin? When's the last time I doctors I know that they're not super medical, but eye doctor years and years ago, she was getting her eyes checked. And he said how she checked her blood sugar today.

Scott Benner 31:03
That happens constantly to people.

Nancy 31:05
I'm like, Huh? Like, of course she did. Right? Well, what was her blood sugar when she checked it? I posted this and I think you mentioned it in another podcast, or I don't know if it was Jenny or somebody. Y'all are talking about my comment. I was like, which blood sugar testing? Do you want the one just before walked in here? The one on the way here? The one at launch? The one after her snag the one this morning was? I mean, she's on index calm? Yeah, yeah, we check her blood sugar. If we didn't, we might make a terrible decision. And she would die.

Scott Benner 31:36
Let me now I'm going to stick up for the other side. This is my favorite part about talking. I love taking all sides of ideas. You said something earlier? That completely explains why an eye doctor who's? Who's really just trying to say are you I see you have diabetes? I don't really know anything about it. I hope you're paying attention to it because diabetic retina, right? Like that's what's in their head. Right? Right. And why why is that something? So first of all, we can expect the eye doctor to understand type one diabetes, that will correct. And you went camping with two people who had diabetes? Who didn't even bring a meter with them. Yes, that's true. That's true. So you're now making have already previously made the point of the physicians who are just like saying things like, Hey, you check your blood sugar once in a while, right. And so you get put in this type one world, where it's, I'm being honest, if people manage if a person's managing their type two diabetes properly, they'd have as much knowledge of diabetes as you do as a person with tight like managing a time person, right? Where would that fall short? Is there a lot more people like your your family who like went into the woods, and it's like diabetes, not while I'm camping? And you don't have that luxury? Because, you know, she has type one, not type two.

Nancy 32:59
I will say that for my dad since a lightens diagnosis. And as he's gotten older, I think but I don't know, I'm gonna guess. And I have no idea if my parents will listen to this podcast. But I want to guess that having the experience of what we pay attention to. He's always been, I mean, a fairly healthy eater. He pays attention a little bit more to Well, what was my agency? And what can I do better? You know, before my next checkup, and he does monitors blood sugar a little more frequently than the camping trip era. So I don't know if it kind of opened his eyes to and we'll talk sometimes like even though they're different, but you know. So I think it's made him more aware of if he is more in tuned with his then possibly he'd have better results. I

Scott Benner 33:57
think that's completely common, right? Somebody just shows you the things like I don't think people are nobodies. Most people there we go. I don't believe I don't believe that most people are willfully ignorant of things. Right. I think that your you know, father's doing what he thought he was supposed to be doing. And type two doesn't kill you quickly. So it's hard to know why it would be important. I'm up, I'm alive. I'm doing my stuff. Like, I have type two diabetes, but I'm okay. Yeah. Nope. It's it's because I just don't think that people in general understand. Yeah, they're their bodies in many different ways, like so to tell them like the your blood sugar's higher. It's not good for you. So we want to keep it lower. Is not, it's not the full picture. The full picture is if you have diabetes, I don't care what kind it is. And you're not managing it in a way that your body can do. deal with, you will eventually die of something related to those high blood sugars. Right? It might, you know, it might say heart attack, it might say seizure, it might say stroke, it might say all kinds of things on your death certificate. But in general, it's going to be because the level of sugar in your blood was too high for too long. Right? You know, and just the same as you see, I mean, my favorite example is people smoke their whole lives. And they'll always be like, doesn't it's not getting me like, I don't know what they're talking about, I'm fine. And then eventually, they die of respiratory heart failure, which is directly from their, their smoking. But there's also people who won't get up and exercise who eventually will die of not doing that, and, or eating like foods, such a great example. You and I can go out now to a fast food restaurant, and eat it. Yeah. And eventually, that fast food will come out the other side of us. And we'll be like, Wow, we have completed the cycle. Everything is fine. But it's not really fine. Because you have slightly degraded the your body by doing that. Not enough to die in the moment, right? It's not poisoned, you don't like you don't eat the whatever you just bought, and you're just body just because it shuts off. But if you think of yourself as being at 100, the day you're born, you know, on day 3000 When you have a chicken nugget that was made in oil, that's probably not chicken, your number moves down a slightly little bit. But yeah, there's gonna be a full point, but you are taking away from your body's ability to stay alive. Yeah, right. And, and life is already trying to do that. So not a lot of reasons to help it is what I'm saying. That's all Yeah. And you know, I'm a hypocrite like everybody else. Yeah, we all Yeah, but I'm not. I'm not saying like, I'm not saying it to put paint out a picture that if you all would just be I just said, y'all, I've only been talking to you for talking to me a little bit. And I'm already I'm about to find a banjo. But, but but I'm not saying that saying like, you need to be perfect or you're going to die. I'm saying you need to understand the impacts of the things you're doing. Right. That's pretty much it. That's all and I think the disease of diabetes forces you to think about those persons. Yeah, it's your understanding.

Nancy 37:30
Yeah, just so. But then for type one, my, not my initial goal. I mean, I had some mentors reach out to me whenever Elena was diagnosed, and as I don't want to talk to anybody, but eventually I did connected with some other moms and support groups, local support groups and online support groups and things like that. And when I met Dr. Hutchins, she's the one that introduced me to the Juicebox Podcast and listen to that. But my goal for wherever I am, wherever Elena's participating has always been to be a voice and an advocate. Our school system has some great nurses, we have a great nurse coordinator. I've never been disappointed with Elena's care at school. I've never been scared or nervous. When she was diagnosed, we were in the middle of relocating. So we were relocating from Middle Georgia to South Georgia, where we live now is where I grew up. It's my hometown, were moving back here after I'd been gone for 20 years. But where I lived, we had been there for a while I knew the school nurse personally, I knew all the teachers, and I'm fixing to be thrown into a new school system that I know, no one sure I might bump into somebody I went to high school with to have a talk to him and 15 or 20 years, I was going into a panic, I was like I should homeschooler I'm not going to send her to school. I don't know these people. I did not do that she went to school. But my goal has always been to be an advocate and to be a voice for diabetes. Wherever we go, whether it's school, or extracurricular, or family or friends or wherever, because the more everyone knows that's around her, the better people are going to care for her. If something happens, the more that people know, the more educated I educate two or three people, you educate two or three people then they educate three or four people and so on and so forth. Maybe some of those stigmas and the the misunderstandings or just all of our type one kids can have a better quality of life, socially. If more people understand what this disease

Scott Benner 39:48
is, yeah, you're putting up those little signs around the world that when you see them you think why is this necessary, but at one point, it was I saw a sign once on a an overlook with like a little bit of water below it, and it just said, don't jump will cause that. And I was like, wow, they had to put a sign here to stop people from jumping off of this. Like who they weren't trying to kill themselves. They were like you could jump off this and live, right? It happened enough times that somebody in power was like, I have to educate people that they can't jump from here. And so when that when that needs to be done, like this is, I mean, you're doing a good thing. You're just out there. I think of it as like being Johnny Appleseed like you just you a little information behind, and hopefully a tree grows. And you know, you don't stay to watch the tree grow. You just go on, right. Yeah. Hopefully this happens.

Nancy 40:43
And I've been excited to watch a lineup grow into it, because when she was young, she didn't want people to see her prick her finger. She didn't want people to see her given her shots and stuff like that. And fast forward to the last several years. She's become her own voice, her own advocate. Now, she's not one that gets super butthurt over diabetes jokes. There's a few that she's like, Come on, guys, come on. But she's not too bashful that if a teacher or an adult around her says something. She's like, Come on, guys. You know, that's not true. Yeah, I didn't eat a lot of like, you know, I didn't do she'll correct them politely. So she's, and there's been a few times that her and the school nurse maybe didn't see eye to eye because I know school nurses manage it a little bit differently than we would at home. They're more cautious. I get that. But as she was finding her voice, and you know, if a nurse is like, Oh, you're 85, you need to correct she's like, correct. Why would I treat at 85 like that. That's a great number. I'm gonna, she's learned to have her voice. I'm super proud of her. She loves showing off her devices. Couple of years ago, she started modeling for a local former workshop. And she's purposefully tried to have her Potter Dexcom exposed when she's modeling, so that she's an advocate for other teams. And she's even said some adults that don't want to show their devices. She has a little Instagram that she posts every once in a while. She's not like the super influence or anything but everyone smile Omni pod has. She just did what we taste as a media blitz for her die aversary With Omni pod, and she was interviewed by a local TV station and several newspapers and articles about her. So she's much more outspoken and willing to somebody comes up to her and says, What's that on your arm? She's like, Oh, well, let me tell you about it, and blah, blah.

Scott Benner 42:48
Can I tell you what Arne just shared with me while she was meeting, so all of her girlfriends are home, right? But they all went to different colleges. Obviously, they're back now for the summer. And she was in this scenario, like on a big video call with a bunch of friends from one of her. One of her friends colleges. And they all sort of know each other because they talk about each other. And you know, they don't really and Arden's like talking, she's on camera, bunch of this big group. And someone says, not with any sense of irony, they weren't joking. And they weren't being cruel. Like they just they they said the thing out loud that they thought, You know what I mean? Yes, all her pod on her arm and said, Hey, what's that on your arm? Is that for autism? Well, I've never heard that one. And Arden goes wide. Any and I didn't know that you could wear a pod for autism? I don't think you can is the point. I mean, I'm not a I'm not a what you would call like, an absolute person who knows everything about autism, but I'm gonna just go out on a limb and say, yeah, the kid was probably that pretty wrong. Right? Yeah. And, but Arden didn't like she goes, No, she's like, I have diabetes. And this is where I get my insulin from. Right. And then all the other kids kind of made fun of the kid like, What are you talking about? You know, but But honestly, honest statement. That back, Carolina's been asked if it was a nicotine patch. That even makes a little sense. Yeah.

Nancy 44:20
Was it a birth control? Patch? Interesting. Sometimes little kids, you know, and she says it's difficult with younger kids, because you know, how detailed do you get? How vague, are you? She teases sometimes that she's a robot, and that's part of the parts of her robot. And she has we're Apple people. So with the Omnipod five, we have to have the separate controller. And people ask why she has two phones and she's she has all these scenarios. She's like, Oh, I'm a spy. And that's my contact phone. That's how they contact me or Oh, that's my business line. That's how so she has fun with it sometimes. So I'm glad that she's here. From the beginning, from diagnosis, we've always respected the disease. But we have never ever made it a big scary monster to her.

Scott Benner 45:10
Yeah, Arden didn't make a big deal out of it, she explained. And then they moved on. And she didn't break the kids balls over. Right?

Nancy 45:17
Yeah. And that's sort of Halloween, he handles it. And she can have fun with it and not be totally offended and a guest that, you know, yeah. So I'm glad that she's old enough now and embraces that and understands. Just like, I know, there's a ton of memes out there that say this. But the day before Lennon was diagnosed, I didn't know either. So why should I assume that everybody else does? Yeah,

Scott Benner 45:43
it's a weird thing to put on somebody. There's, I say all the time. There's plenty of medical issues. I don't understand. I wouldn't, you know, and I wouldn't be mad at somebody for not understanding my life. Right? When it becomes like that feeling like you had with a broken leg like, well, your ignorance is going to cause me a real problem. That's when it the panic kind of sets in. Right. I need you to understand this right now.

Nancy 46:06
But I will, I will say that took care of her way we did fine, didn't manage well, they let me count carbs and calculate. You can ever think you found

Scott Benner 46:15
the guy who understood the wheels and the tires, and he got it all set up for you to pick through the shop a while till you found him I will just

Nancy 46:21
I just would want if a parent is listening, that if you're ever in a medical scenario, you know best how to care for your diabetic child, do not let the intimidation factor of someone with a degree tell you otherwise. You take care of your kid. But and if they're being if they object to that, ask for someone over them. Ask for a patient advocate ask, you know best how to care for your diabetic child, not them. Yeah,

Scott Benner 46:51
it's not rude to expect somebody No.

Nancy 46:53
You know, I mean, we would do it in other scenarios. Yeah. Well, 100% I mean, if you order your food, and it's wrong, what do we do? We we question and we say, This isn't what are ordered, or this seems a little undercooked or whatever. Why wouldn't we do the same thing for our children? Some people

Scott Benner 47:10
eat it? That's true. Yeah, that's so I heard you say something that surprised me a second ago. Cellphones made all the way to where you live. That's fantastic.

Nancy 47:20
We have running water and indoors. That's crazy.

Scott Benner 47:23
But speaking of technology is what I was going for. You is your daughter using Omni pod five?

Nancy 47:31
Yes. So we started Omni pod five. I'm gonna guess we've been on a little over

Scott Benner 47:36
a year. Okay. And how are you? I love it.

Nancy 47:40
I love it. Love it. We have to reset the controller with the replacement they sent us We haven't done that yet. We're doing that at the next pod change. But I want it. I heard something a podcast the other day. Our Basal to Bolus is right in that sweet spot of almost 5050 5050. So I don't want to start over from square one. Just I mean, nobody does. I don't want to put the old settings in there. It's been a year we stay in automated mode all the time. We don't use manual. Sure we're in limited sometimes during a warm up. But we're an automated all the time. And we have been from day one. So those bezel settings are way out of date. So Dr. Hutchins helped me calculate what we needed to put in for current Basal rates and everything. The first thing I saw right away was we weren't dealing with Lowe's as often. Excellent. It was very, very good. Right out of the box for Lowe's, and my time and range clarity report. Typically, there's nothing reporting. You know, it's like that less than 1% thing at the bottom and the low and very low. Typically, that's what our charts have been since we've been on Omnipod. Five. We're anywhere from I'm gonna guess ballpark 60 to 80% and range. Even at summer camp the other week, she was 75% on range at summer camp on on the pod. I've been happy with it. Did we have some highs at the beginning? Sure. While it learned her and from what I took from the community was correct every high. That's what we did when she was high and it wasn't doing very much I would have her put in the Dexcom and have it calculate and give a correction. I would tell you know, put in the CGM reading on the algorithm and we just did that over and over and over and it took us some days. I don't remember how long but

Scott Benner 49:48
we've been very pleased with it. Excellent. That's what

Nancy 49:50
we started with. It was ironic we had a checkup just before we started it, so I knew her I want see And so Dr. Hutchins and I were like oh this will be interesting because we're just We're starting it and then we have a checkup in three months. We'll see her Awan see when we started Omnipod. Five was a 5.9. We were on dash before that 5.9 went back for the three month checkup. 5.9. Wow. Fantastic. And then the last checkup it was 5.3. So I'm pleased, I'm not disappointed.

Scott Benner 50:21
Yeah, I don't see how you could be.

Nancy 50:23
I mean, we don't micromanage it. You know, there's her, her range is 80 to 180 on the decks calm to alert me. I learned that from the podcast, gives me time to react before and I could probably tighten that. But I just, I'm lazy, and I didn't. So if it's alerting me to at least pay attention to it, see what's going on. So we can catch that before it becomes a problem. If it's one at like, where are you going? Let's fix that before it gets really hot. And then we're chasing it all afternoon. I say we respect the disease, and we do but I'm pretty laid back about it, too. I mean, I don't I don't know. I don't feel like we micromanage it. Yeah, sometimes we ask her like, Did you Did you forget you have diabetes? Like just get from the dinner table? I just said like tonight? We don't have that. I mean, you know, we joke about it that. And I feel like with Omni pod font, I certainly do not think about it as much. And I don't feel like I get as many Dexcom alerts as I did. That's great.

Scott Benner 51:25
And our use house sleeping going better, worse. Same.

Nancy 51:29
Same for me. Unfortunately, I my body has gotten accustomed to the Dexcom alerts. And I've tried to change the sounds but my phone I don't know if it's because it's a dinosaur. I must sounds I can't get adjusted. I sleep through alerts.

Scott Benner 51:46
How does that make you feel when you wake up in the morning, you see that you slept through why?

Nancy 51:49
I'm angry and scared and frustrated myself. But I will say the other morning just a few days ago. And I think it was a compression load. But my husband handled it and so he didn't prick your finger. But I would be interested. I really think it was probably compression. Like I woke up and I see that it had been alerting that she was 40 I was like holy cow. Like I slipped through that well. But he gave her a juice it came. I said but I really think because she had been in range been in rain, she drops and then she comes right back. Probably, I think I don't know. But yeah, I feel like a terrible parent if I wake up and it's been alerting, alerting, alerting. However, she's 17 she's a senior, she is going to be going away to college in a year. She's learning to wake up herself. And there's been times that I've slept through. She's heard on she's gotten up. She's handled it go back to sleep. And excellent, fine.

Scott Benner 52:44
That's good. Well, I'll try not to beat yourself up. And yeah, yeah, I mean, when those new phones when the good speakers get to you, I'm sure you'll where they come through the Suez Canal. How does that work? I don't know. That part of the world.

Nancy 53:00
Savannah port, the international port in Savannah.

Scott Benner 53:03
Oh, you know, I get to watch those big boats come in through there. While we're visiting with Arden. It's amazing to see a container ship close up is ridiculous. Yes. How big it is. It's it's really something if you've never seen it. I mean, it's amazing one time it's not. I'm not gonna tell you it's like not like seeing a unicorn where you're like, oh my god every time this is amazing. But you know, just see it once you go out I think is huge. I don't how is that floating? That's crazy. And then how long does it take to get from wherever it came from? China to Georgia? Yeah, months, I'm assuming. Yeah, no, I don't know anything about that. Yeah, no idea. Okay, so we're doing by the way, first of all, I know what I'm gonna call the episode. What is that? It's nothing you said or that I said, but it's the vibe that the episodes gives me and a little bit about what we talked about the beginning. I'm going to call it campfire stories. Okay. Yeah, I feel like that's what we've been doing a little bit. Yeah. So I'm down with that. Is your daughter going away to college?

Nancy 54:13
What she's choosing to do right now, she'll be only about an hour from us and is actually in a town, my son and feature daughter in law will be living there. So she's not going to be terribly far from us, but enough to have separation, independence, I guess you could say. She doesn't want to go to a super big college. And right now she doesn't seem interested in going very far from home and not because she's scared of it. But she's still trying to decide what she wants to do to so that could change this year, her senior year that if she finally the light bulb goes off, and she says Aha, I mean, that could also change where she goes, but right now she'll probably be only about an hour away from us.

Scott Benner 55:00
Okay, but she'll be. She's not driving it. So she'll be living there. Right.

Nancy 55:04
Right. That's she would live when she teases my son. The duplex that they've gotten. They have an extra bedroom and she's like, this is my bedroom. I'm gonna live with y'all while I'm at college. I was like, I don't know if newlyweds would really enjoy that. But

Scott Benner 55:20
whatever. Yeah, I'm staying here where it's free. That's what I was. Yeah. So that's what

Nancy 55:25
they all joke about. But probably yes, dorm dorms. And I think everybody should get to experience living away and learning some independence. And yeah, I'm not there to wash your clothes and change your sheets. And it should a class and stuff like

Speaker 1 55:44
that been good for my kids. I can tell you. Yeah, I didn't do that. But I we were so honestly, I was so broke as a college. How do you pay for that? I just like I somebody once told me. Well, you get started like a local community college. And I was like, How can I afford to get to it? Right? Like you don't know what it's like to be broke. I can tell ya. I don't have $10.

Nancy 56:10
Last year, whenever my oldest, my oldest just graduated from college. So Elena takes college classes like dual enrollment. They have that through our high school. So she takes some college classes now during high school and gets college credits. My husband's getting his master's, my boys are in college. And I used to tease I'm the only person in my house. It's not taking college classes there for a while. Yeah, no care to go back.

Scott Benner 56:35
Please. Do you think there are people right now who are like, wait, I'm listening to a podcast about diabetes or somebody didn't go to college? You absolutely are. You're listening to a podcast run by somebody who barely got through high school. So

Nancy 56:46
hey, you know, life experiences sometimes or teachers? Books that we were just talking about the degrees don't matter. The degrees don't matter. It's your experience with taking care of something?

Scott Benner 57:01
Yeah. Okay. There's definitely some people are like, I'm not turning this back on. I'm gonna tell you right now. i When I graduated from high school, I sat there and I thought suckers definitely shouldn't have given me that diploma. That was ridiculous. I have I Nancy, do you listen to the podcast with any frequency?

Nancy 57:21
I do. I live at a small town. So my commutes are not very long whenever I drive to town. So sometimes when I listen to an episode, I have to then pause it and then listen to it again later. Oh,

Scott Benner 57:33
that there's that that's the proper way to handle that I listened to. So I don't get

Nancy 57:37
through them. Quick as quickly because I'm having to listen to him. But I will set up posted the other day. And I was listening to the snake oil episode. And when he talked about the coffee enema. Oh, I was rolling. I was driving down the road and laughing out loud because your commentary on that was hilarious. Yes, I listened to him. And I'm gonna

Scott Benner 58:01
break I'll tell you why. Like, because I'm not sure if I've ever told the story of the fact that I missed on purpose, to go to work 52 days of my senior year of high school. I didn't missed school. I was absent 52 days in my senior year of high school. Wow. So I used to go to the technical school alongside a regular high school, which was part of this high school scam. When I realized that you can't go to the way I got through high school I think of as a high school scam. Okay, but they used to have it set up where two weeks of the month, you went to a regular like books school. And then two weeks a month you went to a technical school, I didn't actually have any interest in learning a trade. I had an interest in only going to high school for a year and a half instead of three years like that was. So I just took up a trade in high school to get out of going to school. So you made a visit to the technical school like to try to decide what you want to do. I mean there I mean, literally, cosmetology right. Engine Repair, like there's a sheetmetal shop there was like this school did a lot of everything. And what I did is I walked around, I found the class with the prettiest girls, and then I decided that's what I was going to do, which I thought was a rock solid way to make that decision.

Nancy 59:21
So what was that? What was that? Well,

Scott Benner 59:24
I'm a hell of a baker now.

Nancy 59:27
That makes sense. With all your stories about your cooking and everything.

Scott Benner 59:30
I can make bread, you know, 100 pounds at a time. Like forget. Look at what skills that gave you even though I got a job in a bakery out of high school. I kept it for a week. I was like I'm not working overnight. This is ridiculous. And I quit. So but point is I'm old. So back back then. Computers. Were really just starting to be a thing. Yeah. And the internet really wasn't a thing. Right. So the computers at the height school didn't talk to the computers at the technical school. So I learned that you could, I found out that you could what the maximum days were that you could miss. And I missed that many days at each school. And they never reconciled and I graduated. Nice. Yeah, it was lovely. And but I would go to work like for all of you are thinking like, Oh, great. Well, Scott was smoking crack. Scott went to a sheetmetal shop and broke his ask for $5 an hour because he was poor. But but it was. I don't know. I just I didn't even go to high school, I think is what I'm trying to say. Yeah.

Nancy 1:00:37
But you learned to bake? Well,

Scott Benner 1:00:40
that is for you all,

Nancy 1:00:41
but I don't know. I mean, sometimes when you talk about I have a recollection in the podcast talk like hearing you talk about cooking, or maybe it's on the Facebook page or whatever, talking about meals and everything and all your meals always sound so. Great. See, well,

Scott Benner 1:00:57
I don't know when the war of 1812 was though. Well, I think it wasn't 1812. But I'm maybe I can't be 100%. Sure. And that's concerning. Gosh, you said something that made me want to say something else. And now I can't remember I had two thoughts in my head. Here's a little secret. My whiteboard is full. I had two thoughts. Normally, I would have jotted them both down then told you the first one. But I didn't. And so now I don't know what I wanted to say. It's okay. Don't worry. Okay. You've been delightful. I wondering if there's anything we haven't talked about that we should have?

Nancy 1:01:29
I don't think so. I think I enjoyed the conversation. And I feel like I got to share our story and brag about my daughter how awesome she is. And she's going to conquer the world and she's not afraid of going out there and taking it on herself. So excellent. I think I did okay, in that chapter.

Scott Benner 1:01:57
Okay, sounds like you did better than okay. Also, because we've been having such a good time. We've now all forgotten that each one of your children has an issue. And so two people in your family and that's a lot to deal with. It's usually I usually ask, are you okay, like, what do you do for yourself?

Nancy 1:02:12
Ah, not much. I have a favorite saying that. Just because I look like I carry it well, doesn't look just because I make it look easy. Doesn't mean that it always is. So check on your friends. There are days that are pretty tough. I mean, I've gotten phone calls when David was in college, that they that he had had a seizure and I had to whisk myself away there. You know, watching the Dexcom Elena's on a overnight trip with she's an FFA which is it used to be stand for Future Farmers of America. They don't they just call it FFA now, but she does horticulture and she learned welding and stuff this year. But she goes on field trips for competitions and everything overnight. My son, he's older sort of caring for himself with his Crohn's, but you know, headed to the ER, I'm having a flare. So, I do juggle quite a bit. And I probably do not care for myself quite as much as I care for others. And that's probably not a good thing. But yeah, my kids are the most important thing to me. And I have been blessed with a husband that allows me that I work very part time so that I can be very available for our children at any time that they need me.

Scott Benner 1:03:40
Well, I will share with you and and I'm sure you know this but I think there's probably a way that you could do some more for yourself and, and still instill hope your kids. Yeah, there is Yeah. Plus you painted a picture of some pretty independent children. So they're gonna get sick of you pretty soon anyway. Yeah,

Nancy 1:03:56
no, soon I'll have an empty nest. And then I can I did ask for a little small greenhouse for my birthday last year. And so my husband, a mother in law, and my sister in law got me this little small greenhouse. It's not really big a smaller than like an outdoor shed. But as I started that little hobby, growing some stuff I've always had, like little, like might do vegetables or something. But I started doing flowers because I thought Oh, how fun would it be to just go and cut up okay, in your yard and have fresh flowers. So I've told myself, I need to pick up some hobbies because when Elena leaves to go to college, there's not going to be anybody but the dog or my husband to take care of. And that's all I've done for 23 plus years with kids is so yeah, I need to find some hobbies to

Scott Benner 1:04:43
I know how you feel. Yeah, yeah, it's it's a stark moment. And when that happens, you'll it'll hit you right in the face. Like, oh, no, I'm only good at this. I don't need anything else.

Nancy 1:04:56
Yeah, somebody had asked me you know, if you take away wife, mother, you know your career. Who are you? And I was like, Oh, I don't know.

Scott Benner 1:05:09
I'm the lady who might want to grow flowers. Yeah, seems shaky. Who lives two hours from anything?

Nancy 1:05:17
Ya know?

Scott Benner 1:05:19
How leaving to get the seeds? Do

Nancy 1:05:22
you drop them with pigeon? The

Scott Benner 1:05:24
Oh, yeah, because the helicopters can carry. Yeah, yeah, what happened? Yeah. I have one last question. I'm gonna let you go. Sure. Why is there no diet drinks in the South? Why are there no diet drinks in the south? We have diet drinks. They're very hard to find once you get below North Carolina.

Nancy 1:05:46
Elena loves Diet Dr. Pepper that's her go to and if they don't have that, or there's some machines she's learned fast food that the mixture doesn't make it taste right. Not the freestyle but like they don't mix the soda and syrup. Right? She'll order a Diet Coke but we have

Scott Benner 1:06:03
all right drives feel like I can't find them. It feels like you people just want to drink sugar is what I'm saying. I'm in the wrong places then. Yeah. All right. Nancy, I really appreciate this. I also appreciate that your sound is so clear. I don't have to edit this episode. We did. Oh, wow. Verse. We didn't say anything ridiculous. That has to be cut out. Okay. And the sound is you just saved me two hours of my life by having all your wealth and bake some bread. I don't know how the hell you got them to deliver that thing to wherever you are. But I really appreciate it.

Nancy 1:06:40
My middle son's gaming headset and gaming microphone. I'm in his bedroom at his computer. Well

Scott Benner 1:06:45
thank him for me because I really do genuinely appreciate it. Hold on one second for me. Okay, okay.

A huge thanks to Nancy for this really terrific conversation. I really did enjoy it. And thanks to you guys, for listening. Don't forget to check out the private Facebook group Juicebox Podcast type one diabetes 40,000 members, conversations about everything happening right now type one type two doesn't matter. Kido full time karbi just salads. Doesn't matter. Everybody's invited Juicebox Podcast type one diabetes on Facebook. I want to thank you very much for listening. And remind you that when you click on the links for the advertisers, you are supporting the podcast and helping to keep it plentiful and free. tell somebody else about the show. If you're enjoying it, won't you? Hey guys, just jumping in to remind you that one of our sponsors better help is offering 10% off your first month of therapy when you use my link better help.com forward slash juice box that's better. H e l p.com. Forward slash juicebox BetterHelp is the world's largest therapy service. It is 100% online boasts over 25,000 licensed and experienced therapists and you can talk to them however you want text chat phone or on video. You can actually message your therapist at any time and schedule live sessions when it's convenient for you. Better help.com forward slash juice box save 10% On your first month.


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