JUICEBOX PODCAST

View Original

#785 Tommy's Mommy

Heather is Tommy’s mom and he has type 1 diabetes and his sister has celiac.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

See this content in the original post

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 785 of the Juicebox Podcast.

For those of you wondering who Beatrice is, she's the daughter of a friend of mine who's sick of hearing my voice. That has nothing to do with this episode. On this episode of The Juicebox Podcast, we're going to be speaking with Heather. She's the mother of a child who has type one diabetes, and another child who has celiac. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your healthcare plan, or becoming bold with insulin. The T one D exchange is looking for adults who have type one diabetes or people who are the caregivers of people with type one diabetes that happened to be US residents and they'd like you to go to T one D exchange.org. Forward slash juicebox to join their registry and fill out the survey. T one D exchange.org. Forward slash juice box. If you don't know what the D one D exchange is, Episode 783 will tell you everything you need to know if you already know and you want to do me a solid T one D exchange.org forward slash juicebox go complete that survey

let's take a second to thank us med for sponsoring this episode of The Juicebox Podcast. How do we thank them. We go to us med.com forward slash juice box or we call 888-721-1514. Either of those things will lead you to your free benefits check and get you on the road to getting your diabetes supplies from us met us Matt is where Arden gets her supplies and you could to us med.com forward slash juice box. This show is sponsored today by the glucagon that my daughter carries G voc hypo penne Find out more at G voc glucagon.com. Forward slash Juicebox Podcast is also sponsored today by touched by type one head to their website touched by type one.org To see all that they're doing, including their D box program for newly diagnosed people. You go there and just say hey, I've been newly diagnosed with type one. I'd like some information and some resources and they'll send you a box full of goodies touched by type one.org

Heather 2:39
My name is Heather. I am a mom, a nurse, a wife. My son is the type one diabetic. He's here with me. Pretty Hi. Hello. Hey, what's up? My name is Tommy. He is 12 was diagnosed. Almost at nine years old. It was we spent his ninth birthday in the hospital.

Scott Benner 3:06
That's about it. One child.

Heather 3:09
I have three. He is my only son and my middle. Okay, so two girls. Yeah, a 19 year old keys 12. And then we have a 10 year old as well.

Scott Benner 3:20
Gotcha. Is there any other type one or autoimmune in your immediate family?

Heather 3:25
Zero? Nothing? No, his um, his grandma has thyroid, but she had like, drastic weight loss. So they always have chalked it up to that. That her thyroid like just couldn't keep up kind of thing.

Scott Benner 3:43
Her but Tommy's grandma um, your mom or his father's mom?

Heather 3:47
His father's mom.

Scott Benner 3:49
Okay. Are you married?

Heather 3:50
Yeah. My mom is adopted. So we don't know. Anything beyond her. Okay. And then my dad has nothing. His mom is 94 I think and she takes blood pressure medication. That's it. So she's healthy as a horse. It's

Scott Benner 4:08
crazy. Yeah, okay. You said his father's Are you divorced?

Heather 4:14
His father passed away. He was five.

Scott Benner 4:17
I'm sorry. That's that sounds crazy. Yeah. All right.

Heather 4:23
It was unexpected. So it wasn't like a medical thing.

Scott Benner 4:26
I say, Okay. I just want to understand the lay of the land. So all right, so we're good. Yeah.

Heather 4:32
Yeah, I am married. But it's not his biological father. Gotcha.

Scott Benner 4:37
All right. Well, three years ago diagnosed came out of the blue obviously. Can you tell me a little bit about what happened?

Heather 4:45
It was late August. School had started 10 days two weeks ish prior. It was his first soccer practice. So my mother in law picked the kids up from school. I was at work. I'm an emergency Even nurse. So I was at work and she picked them up for me to come to her house. I got off work early. It was Tommy's first soccer practice of the season. So she has a pool. She it was a half day the kids get out early on Thursdays. So she picked them up, took them home, let them swim, you know, hang out before soccer practice, I pick them up. She's like, I put extra water in for Bob. He's just been like extra thirsty today. I was like, and it's you know, it's August. It's hot here in California. So I didn't think anything of it. We went to soccer practice. It's about a 40 minute drive ish from her house to soccer practice. He makes me pull over to pee, which didn't think anything of it again. I pull over. He pees on the side of the road. We get to practice. Half hour into practice. He's gonna have to pee again. And I'm like, What the heck Okay, so we walk him up to the bathroom. He goes to the bathroom, finishes soccer practice. He downs, both water bottles that I had for him on our way home, which is about a 10 minute drive home. He makes me pull over again. UPS don't want to eat dinner. Everything's he's acting totally fine. No, you know, nothing. So between eight o'clock, or I'd say nine o'clock that night and 7am that morning, he got up four times to pee in the middle of the night. He normally pees at nighttime, like once a night at this point. So by the third time I'm laying in bed, like what the heck, you know, and the bathroom is like catty corner from my bedroom. So I wake up every time we go to the bathroom. And I'm like, What is going on? So my nurse brain kicks in, you know, and I'm like, differential diagnosis, everything here. And of course, type one is in the back of my head. So wake him up that morning. And I'm like, hey, you know, do you feel okay? Is everything fine? He's like, Yeah, I'm fine. Like, you good. I'm good. Like, I don't you know, thinking I'm crazy asking all these questions. I make him pee in a cup. Because I'm like, maybe it's a UTI. Or, you know, I just want to like, do my nurse stuff. You know?

Scott Benner 7:20
You're a nurse. You love making people pee in a cup. So it's like,

Heather 7:23
yeah, normal thing here. Yeah. So it's fine. You know? No odor. No, no discolored, nothing. So I'm like, you're good to go to school. He's like, Yeah, Mom, it's Friday. I can't miss a Friday. Like, okay, so I send them off to school. He's not the easiest child at that age in school. So the teacher walks out. And I'm like, Oh, cool. Would my kid do today, you know? So she gets into the car. And I'm like, what happened? She was like, no, no, no, no, nothing bad. Like, he was great. But he peed all day long. And I'm like, okay, great. So his birthday is that weekend. It's supposed to be on Saturday. So we go to the grocery store. And I'm like, you know, my husband is a fire paramedic. So normally, I would run things by him, you know, like, hey, what do you think about this? Well, he's on a fishing boat in Mexico. I can't get a hold of him. So I called my best friend who is nothing medical. And she's like, You're crazy. The only reason you think that because you're a nurse. Like, if it was any other mom, they wouldn't be thinking this way. Blah, blah. So I was like, Okay, you're right, you're right. Like, there's no way it's diabetes. Like, why would that be a thing? So we're at the grocery store, I got the cake and the ice cream and all the things, you know, any in line, and he's like, if I don't have water, I'm gonna throw up. When I was like, water is going to fix you like, what do you what do you mean? So there's, you know, I let him go get like water from the little fridge, things in the aisles, you know, at the checkout, and he literally drinks the whole thing in like 30 seconds. And it right then I was like, Okay, we're done. So my best friend actually, they thought she had autoimmune stuff. So she had a glucometer. So I call her I was like, Hey, I'm coming over, we're checking his sugar. I can't like go another minute without like, at least getting this thought out of my head. Right. Right. So we check it and Hi. And I was like, I just kept saying, I think knew it, I think knew it, I think knew it. So I throw my other kid to her all the perishables you know, that I just shopped for and him and I had to we went to my hospital, which I shouldn't have in hindsight, because we don't have pediatrics there. But, you know, I was kind of spinning At the moment, I just wanted to go somewhere. I knew I have

Scott Benner 10:03
a question. The idea that if I don't drink, I'm gonna throw up. I've never heard anybody put it that way before.

Heather 10:12
That's all he kept.

Unknown Speaker 10:14
I mean, he's here. It was really weird. It was like, I like had when you were like, right about to throw up. That feeling like in the back of my throat was weird. And I also had the feeling that, like, I needed water at the same time. And then when I drink the water, I was fine. Like I didn't like it was weird.

Scott Benner 10:34
Okay. Hey, Heather, if you put him on again, get the microphone closer to him. Okay. Okay. All right. But all right. That's I mean, that's really interesting and good, like firsthand feedback. It's I mean, he's in decay, obviously. What was his blood sugar when you got into the hospital?

Heather 10:49
Oh, he wasn't in DKA at all? No. No. His sugar was five, something 566 60s Somewhere around there. High fives. But no ketones. They you know, they did all his blood work. And there was no he wasn't in decay at all.

Scott Benner 11:10
Okay, Sugar was just high. So did they keep him or did you guys

Heather 11:14
we were transferred by ambulance to the children's children. The local children's hospital. Yeah.

Scott Benner 11:20
And they you stayed there for a number of days.

Heather 11:23
We stayed there. So we get there on a late late Friday night. And apparently, the diabetes educator had just resigned. And they only had a Monday through Friday, diabetes educator, like a eight to five Monday through Friday kind of person. So we hung out in the hospital for two days with nothing just, you know, insulin, I mean, insulin, but no, they wouldn't let us go home. Right. And so we got the proper education and blah, blah, blah. So 7am Monday morning, my husband is literally like at the nurse's station, like let's go. We're leaving. Give us what we need. So we left late Monday night.

Scott Benner 12:12
Okay. How was the I don't just want to know about the initial bid. But you know, these past three years? Has it gone? Smoothly? Has it been? slow going? Are you in a good place? Or house? Yeah, we're

Heather 12:28
in a good place now has a once he was only eight at diagnosis. So we caught it really, really early. And he's 6.2 now. So yeah, we got him the tech really early. One of my husband's co workers, his son had just been diagnosed within like six months of our diagnosis. So he reached out to my husband, you know, because word spreads pretty quick through the department and stuff. And he reached out and he literally was like, Dexcom pump education. Like that's, that's what you need to know. So I was in the hospital googling what to do. I had no idea what a Dexcom was like, that isn't in my emergency. Right, you know, brain so so we we got them a Dex calm. I would say within like six weeks, eight weeks, he had a Dex calm. And then six months at the most had a pump.

Scott Benner 13:33
And who managed it mostly because I'm trying to figure this out. Like if you're, if your husband's doing emergency services, and you're working in a hospital, I'm amazed. I'm imagining excuse me that your schedules are all over the place.

Heather 13:46
Schedules are out of control. Yeah, I manage. My husband doesn't really unless I'm gone and he obviously is here with him. But I don't even think he has I don't even think he follows him on Dexcom to be honest.

Scott Benner 14:01
Okay, so it's I don't really know that

Heather 14:04
you and I do. I do.

Scott Benner 14:07
Basically you and Tommy are is Tommy like How involved is he?

Je voc hypo pan has no visible needle, and is a premixed auto injector of glucagon for treatment of very low blood sugar in adults and kids with diabetes ages two and above. Find out more go to G vo glucagon.com forward slash juicebox G voc shouldn't be used in patients with insulinoma or pheochromocytoma. Visit G voc glucagon.com/risk. All right. You have diabetes where your loved one does and you need stuff. You need insulin pumps and continuous glucose monitors and test strips and meters. And where does this stuff come from? Well, we We used to get ours from a number of different places, and they all they suck. But now Arden gets her diabetes supplies from us med. Us med.com Ford slash juicebox better service and better care. That's what you have over 1 million other diabetes customers since 1996 are going to get from us med. To get started, you can go to the website us med.com forward slash juice box or call 888721151 for us med gets an A plus rating with the Better Business Bureau. They accept Medicare nationwide and over 800 private insurers. They carry everything from insulin pumps and diabetes testing supplies to the latest CGM like the FreeStyle Libre three and Dexcom G six. US med always provides 90 days worth of supplies. And you get fast and free shipping us med.com forward slash juice box. There are links to G voc hypo pen, US Med and all the sponsors in the audio app that you're listening in right now in the show notes of that app. Or they're at juicebox podcast.com. When you click on my links or type them into a browser, you're supporting the podcast. So thank you very much.

Heather 16:27
Very, very involved. Yeah, he goes to school and does it pretty much all on his own. I text him but if he responds, yeah, if he responded, see,

Unknown Speaker 16:37
because school school was like, so much going on. I'd never feel my phone vibrate or anything. And I keep it on silent because I get trouble.

Heather 16:47
I do have a pretty strict phone, no phone policy at school. So

Scott Benner 16:53
I texted Arden for about two hours this morning trying to get her attention. And she finally was like hi.

Heather 16:58
Yes, literally, like I get like, I have like the read receipts on his phone. And I tell him like just read it. Like you don't even have to respond. I just read it. And then I know you saw it at least but I don't even get that. Like it just he pretty much manages on his own. Oh my gosh, while he's at school.

Scott Benner 17:18
Sure. Yeah. So that so that's kind of that's very interesting, actually. So he's making decisions about his meals on his own. I mean, do you tell him how many carbs are in it? Or etc

Heather 17:30
does he Yeah, I pack his lunch every day. And I it's a like a paper bag. And I write the carbs on the bag. Okay, and then he'll dose what I write on my bag. I keep it within the same it's either 20 or 30 Like it's one of the two usually depending on like what sports he has that day or he can't have any insulin on board to for activity I mean if he has like one unit that's about the most he can he dumps he gets anything Yeah, really like he's very very sensitive during exercise.

Scott Benner 18:10
So are you saying on days when there's activity after school, he gets a fewer carbs at launch big so that you can use less insulin.

Heather 18:19
It's usually PE that I worry about during the day okay after school that you know insulin is usually gone by his after school stuff. But if he has PE after lunch, then I have to like kind of reduce the carbs in his lunch

Scott Benner 18:38
got does he eat similar things over and over again or just you keep the carb count similar

Heather 18:44
be pretty much eats the same thing. I might change up the like fruit or chips that he takes. But for the most part, it's the same thing pretty similar. Okay, sandwich pickled jello, you know, cookies or

Scott Benner 18:55
chips? Pickles and jelly.

Heather 19:00
Like favorite. You takes jello every single day. He loves jello. You just it's easy. So

Scott Benner 19:05
yeah, you just had fruit now i realizing when I'm done here. I have grapes in the refrigerator. I'm gonna go have some he, he loves fruit. I just I'm just amazed that as I'm talking I'm listening so intently to you. And then you said something and my brain was like you should have grapes later.

Heather 19:24
That sounds like Tommy's brain. Yeah. Well, I didn't even said what

Scott Benner 19:32
what can I ask like what what made you want to come on the podcast?

Heather 19:37
I listen. Pretty much daily. I'm not caught up yet. I started from the beginning. I'm one of those so

Scott Benner 19:44
I appreciate you very much. And you

Heather 19:47
add I'm getting there. Wow. Nice. Yeah, how long? Every single day but yeah, how long did you start? Yeah, no, it's definitely a single day. Oh, wait,

Scott Benner 19:56
hold on a second. Tommy says you listen every day. Yes, curate.

Unknown Speaker 19:59
Every morning every morning, I wake up to the sound of you.

Scott Benner 20:04
That makes sense to me, Tommy, that's, that's my goal. So I apologize that you have to hear my voice, but I'm not.

Unknown Speaker 20:12
I think it's kind of cool. Because like, it's cool that my mom enjoys listening to things that helped me. It's

Scott Benner 20:20
really cool. That's nice. So, so you started, how long ago? Did you start listening other?

Heather 20:28
Two years ago, probably honestly.

Scott Benner 20:30
Wow. See? That's

Heather 20:31
why I say it's not everyday. Well, this

Scott Benner 20:33
is the dedication I need from people, like you're really putting in the work to listen. Thank you.

Heather 20:38
Yeah, I mean, it. The same thing that everybody says, you know, like, you don't get near what you need from a doctor. I mean, I see him every three months. And ours has been zoom for two years now. Yeah. So it's really nothing, you know, I make all the changes myself. I do it all. I mean, I literally go so that they'll renew my prescriptions for things. And I mean, and they're great. They're nice. They're, they're lovely, but they don't I mean, they do. They don't really do much.

Scott Benner 21:11
Is that hard for you to say being a nursing professional? Is it? Is it No, no, it was it was it was a true. I mean, was it even surprising?

Heather 21:20
It was surprising. For sure. When I went into it, I knew I know how to get someone out of DKA. That is what I know that is my wheelhouse. I've been a ER nurse for 15 years so I can get you stable. And then I give you to someone that can teach you how to manage I don't teach people how to manage type one diabetes. Yeah. So I thought I was gonna go into this world of education and knowledge. And you know, all just no one even mentioned CGM, or Dexcom, or nothing, a pump nothing to me while I was in the hospital. And if I would bring it up, it was like, oh, we'll talk about that later. You know, oh, we'll cross that bridge later. And I was like, no, what do you later know, like, this is now this is happening now. Like, I don't want to talk about it later. So his first appointment after diagnosis, I said, I want to Dexcom and she, like, she's a very, very nice lady. But she just kind of smiled politely and said, Oh, well, you know, we'll cross that bridge. And I said, No, I'm at the bridge. And we're gonna cross it today. And she was like, Well, you know, we'd like people to know how to manage better. And we're assigned a nurse Anna, Anna physician at the clinic. And the nurse spoke up for me and she said, She's, uh, you know, 13 year er, nurse or 12. At that point, whatever. I think she's okay. I think that she has her knowledge base. She's not going to, she's not going to understand diabetes more than she already does. I think that, you know, they're ready. And then she looked at my nine year old and said, Are you ready? And he was like, what? For? What? I don't know. What am I ready for? Like, yeah, you know,

Scott Benner 23:06
yeah, I just come here, because they tell me to, and then we're gonna have lunch later. So leave me alone. Literally, exactly. I don't understand. I don't understand that concept at all. To be perfectly honest. I mean, you know, can you imagine if someone came into the ER, and they were experiencing, I don't know, like skipped beats in their heart or something like that. And they said, hey, put me on a heart monitor. And you were like, well, we'll cross that bridge when we get to it. Like, why are we not there now? And what what exactly is going to happen? Having good data? Like, how's that going to stop you from learning diabetes? And

Heather 23:39
no, it literally all it was doing was saving his fingers. Yeah, the CGM light. And that's what I explained to them. Like, I'm checking sugar. I took six months off of work, after he was diagnosed, because the school was they were lacking education for, you know, to be nice. And they had no idea that the nurse there was an LPN. And she was a hospice nurse prior to being a school nurse. So she had, she just had no idea on how to manage a type one child at all. I mean, it was to the point where like, when he's, oh, I give them insulin, right. And I was like, whoa, whoa, whoa, like, everyone's slow down. God, yeah. So I bought like books. I literally made a PowerPoint. And like, took it in and the principal and the teachers and the nurse, were all there and I like went over everything with them. I went in three times a day. I went in for snack for lunch, and then after two hours after lunch to check a sugar for six months I did this. So

Scott Benner 24:52
did you learn a little bit? Did you personally I learned

Heather 24:55
Yeah, yeah. I will say the biggest thing I took away from is like not to be so scared. I was so scared to send him anywhere. With out maybe like, I'm just staring at him like, are you good? Are you bad with sugar? What are you doing? How do you feel? You know, like, you know that for until that? Yeah, until the Dexcom pretty much our first soccer practice after diagnosis. Because I mean, he's nine, and he's active. And he's like, I play on the soccer team. why don't why am I not going to soccer practice? So it was literally a week from diagnosis. He was like, I'm going to soccer. It's Thursday, right? And I was like, yes, yes, you are. Sure. Let's go. So, you know, at that point, I felt like I was carrying a suitcase of stuff around. And I'm like, let's go to practice. So then after practice, he's, I've been like, really good about the food and the carb counts, and measuring and weighing and all that stuff. And he said, Can I have McDonald's? And I was like, okay, normal kid, Kid first, like, I want to give him what he wants. I don't want to, you know, sure to feel different or whatever. So I'm like, Yeah, McDonald's. Sure. Let's do McDonald's. So I Google it, the carbs and Dosen. He eats, you know, just going along. And he's like, I'm fiddling in the kitchen, and he's finishing up and he's like, Mom, I don't feel good. And I was like, What do you mean, you don't feel good? And he's like, I don't know. And I turn around, and he's gray. And I'm like, Oh, my gosh, so I go and I get the glucometer a check on 27.

Scott Benner 26:33
Oh, yeah, members. Yeah.

Unknown Speaker 26:36
Yeah. I don't remember like the McDonald's part. But I do remember coming home. She's doing something in the kitchen. And I come out of my room and I'm like, I don't feel good. Like it was just so fast. Right. So I kinda it's not. It's not the same as it was. Probably because I've never been that low ever. Like, that's the lowest point I've ever been. But it was like, it was quick.

Scott Benner 27:03
Yeah. What happened? Did you over Bolus for the food do you think and then it caught up to him?

Heather 27:09
I think he was still kind of honeymooning. But we had no CGM. Yeah, so you know, I check his sugar before he ate. I counted the carbs I gave them. It was McDonald's. So it's a hefty Bolus, right. And I, you know, I get and I think the exercise preceding that I didn't take into account now I know how sensitive he is to exercise, but I have no clue then.

Scott Benner 27:34
The story takes me back to what you said about the, you know, the the people at the hospital who get to decide whether or not you get technology or not, you know, this very basic, old timey idea of oh, you need to understand it without the tech first like, there's nothing about going through that experience without a CGM that made you better at anything. He

Heather 27:55
made me worse. Yeah. If anything, it made you scared. Yeah. Yep. That's at that point. I remember calling my husband. And he was at work. And I was like, I'm taking six months off. And he was like, six months, like, what, what are you talking about? And I was like, I'm taking a leave of absence from work. There's no way I can leave this kid. Like, there's no way.

Scott Benner 28:17
So my opinions like Oh, coming here, you know, he was like, oh, geez, I gotta get another job. But

Heather 28:24
I got paid. I mean, you know

Scott Benner 28:25
what, so many people have that initial feeling. And that's what I'm saying. Like, if in that moment, that McDonald's example, if you have a CGM, you would have gotten, you know, hit beat, you know, beeping and arrows, and you would have said, Oh, gosh, something's happening. And you could have given him sugar previous to him getting to be I mean, 27 He was just about ready to have a seizure. Right? Yeah.

Heather 28:47
I mean, it's, I literally had dreams about it for I don't know. No, I bet you. I would say I but yeah, I mean, I'm sleep with me. My nine year old child that slept with me since he was, I don't know, ever Yeah, he's not a co sleeper. He never has been. So I, you know, he was like, Can I When? When can I be done with this? I remember him asking. When am I allowed to go sleep in my own bed? Yeah. My husband is sleeping on a full in the, in his room, and he's in my bed with me. Well, let me you know, like it was.

Scott Benner 29:22
Yeah, let me tell you something. This is funny. You bring this up, because just yesterday, Arden had a like a sticky 190 blood sugar after a meal. And she's not feeling well. So I went after it with more insulin, and much more quickly than I anticipated. She was She dropped. So I probably either got too aggressive or got aggressive in a moment when she was about to come down to begin with. But anyway, 30 minutes, you know, 40 minutes later after this, this Bolus, she was 85 Two hours down. I have not seen two hours in a really Last time, and it was not a big deal because we got the notification. And, you know, she drank a little bit of juice had a little bit of stuff. And we caught it before it was ever a low. But even at my level of understanding without a CGM, I never would have expected that drop like that. It just, it was outside of my, it was outside of my belief in that moment that that could happen. And so, I mean, I've been doing this for a long time if Arden's almost 18. I've been, you know, I've been doing this for like 16 years. And I'm the guy from the podcast. And I got taken surprise, by surprise the other day, and in the CGM, the Dexcom, save my butt, and Arden. So I don't get the idea of you need to struggle before we let you have this technology. I hear I hear that I would always I wish that, you know, I realized back then you were new to it. But I wish you would have had the wherewithal then to say why? And just ask them why. Why are you saying that? Because I don't know that. The next explanation is going to make much sense. You know, other than this is how we do it. So which Yeah,

Heather 31:09
that's the, you know, our first appointment. That was pretty much what I said was like, why don't why? Yeah. Like, like, well, we need you to have a better basis of knowledge. And I was like, then my bachelor's degree in nursing. I don't you know,

Scott Benner 31:27
yeah. Or how about why can I get that knowledge ball? I have the safety system and a Dexcom. What's, what's wrong with

Heather 31:33
Dexcom? give you knowledge. That's what it is, is knowledge. You know, oh, and Apple hits him like this. Oh, okay. Right. You know, oatmeal hits him like this. Oh, okay. Like, it's all you know,

Scott Benner 31:46
that I'm telling you exactly what it is. I'm telling you right now, that's a bullcrap answer from them. And yeah, it's just unless you're just listen. I mean, is your pot roast?

Heather 31:59
Yeah. What it is? Yeah, yeah,

Scott Benner 32:00
exactly. They just they say they say it, because that's what they say. Listen, there might be a situation where there's a family in there, where maybe, you know, maybe I don't know, what if your parents don't have two brain cells between them? Maybe they're a little scared to give you something like that. But this is clearly not your situation. And I just find it to be antiquated advice. And I'm not a fan of Yeah. So

Heather 32:22
yeah, I mean, his first and no one's ever given him an object an injection, but me and my husband, even in the hospital, the nurse came in and she's like, Okay, are you ready for your dose for breakfast? And he looked at her and he said, you're not you're not touching me with that needle? I don't know. I thought he was scared. You know, I thought it was like a scared thing. Right? And he looked at me and he said, You're a nurse, you do it. And I was like, okay, like, yeah, that's, I feel like that's reasonable. You know? What, I'm a nurse and too, I'm gonna be doing anyways. And then the nurse told him like, oh, no, no, buddy. You know, like, that's not how it works. And he told her, he was like, you're not. You're not gonna do that how it works. Yeah. And he was he was dead set and looked her straight. And I he was like, that's not happening. Yeah. And so and she was like, Are you comfortable mom? And I was like, giving an injection? Yes. Like, I think I'll be okay. Got it. Yeah. And then, you know, you go into the room, and they're like, here's an orange. And my husband and I looked at each other and we're like, great.

Scott Benner 33:27
She's a nurse.

Heather 33:30
I don't think that nurse that the night shift nurse when we got there knew, but I don't think it was passed on, I guess and report or whatever. And then the educator had zero idea that we were medical. had any? Yeah. Yeah, she had no idea. Wow. So we, I mean, we just went well, I don't, you know, I don't really like wear it on my forehead or anything. So I just kind of went along with it. And I was trying to be nice. And listen, and you know, this is glucagon. You take it out of here, and you put it in and I'm like, like, like I did yesterday at work. So

Scott Benner 34:06
you're so You're so polite, but I got a call. How do I tell a story? So I had to I put my name Arden's name on the list for Omni pod five through on the pod just like everyone else, you know, who used my LinkedIn and yeah, and I got a I got a call from you know, just a salesperson basically from from lollipop and they're going over everything and she's explaining it in this just very basic detail. And I stopped it I believe, I was very polite, and I said, Hey, listen, can we just for the, for the rest of this conversation, you should assume that I know as much about this as could possibly be known. Like I don't I don't need you to tell me the real basics of all this. And she was like, oh, okay, and then just was able to change streams. But you know, I do understand like In all these situations, They don't know what you know, you know, and it's it's their job to put it out the way they do it. It's just It gets frustrating sometimes even, you know, like, even when you call someplace, I don't know how to place an order for something, they start asking you these benign questions about like, my favorite one is I called What the heck is that place where we used to get our medical supplies from? Oh, my God, how can I not think of it? Anyway? We use a new place now. But that's not the right call the in the first day of the question the lady says is does your daughter use insulin? And I'm like, calling you to get insulin pump. So the first thing I said to you was, I need to order insulin pumps. And now your first question is, Does my daughter use insulin? Like, yeah, okay, like, I know you're reading from a list. But when does common sense come into this conversation? And they

Heather 35:55
are just a little bit of, you know, thinking before you speak kind of thing,

Scott Benner 36:00
and I completely understand that that's the job and that she needs to read that list. But I'm not I mean, it's not incredibly frustrating. But after it happens to you a couple of times. Oh, like, couldn't you? Couldn't she have just said, I realized she uses insulin because you're ordering insulin pumps, but I need to ask you this, like, legally, so or whatever. And I would have been, I would have responded yes. I don't know. I'm

Heather 36:25
physical for sports the other day, and I just went to like the local chiropractor's office. It's quick, easy. 40 bucks, you walk out, you know? And is there any medical problems? I said, type one diabetes, okay. They write it down the night, you know, asked another something else. Something else, any medications? And I just like, insulin, it's like, yes. When he was like, oh, oh, it's okay. Like it like took him by surprise. I was like, wait, what in the heck? I don't know. Granted, he's a chiropractor, I guess. But I don't know. They probably don't see type one kids very often. But you know,

Scott Benner 37:03
I was in an intake, meeting with Arden as she switched OBS. And the same thing. Like the questions for 10 minutes, were just mind numbing. Like, you would have very little about diabetes, not to have to ask these questions. And you just sit there and not along and at least memory here. Yeah. I know. I just think about poor Arden. Like for the rest of her life. Happy to sit in a room going Yes, yes. Yes. Yes. Yes. Yes. You know, like just being irritated.

Heather 37:32
Yeah. Always. They always ask restrictions or any restrictions for sports. I'm like, no, nothing is all good. No. Are you sure there's no restriction? Like, you know, because

Scott Benner 37:42
you just said he had diabetes. So you show there's no restrictions? Yeah.

Heather 37:46
I think that's what they think. And then I'm like, nope. And they're like, really? Like, you know, yeah, I just, it boggles their mind. And I'm like, he's fine. Like, he's good. Yeah,

Scott Benner 37:57
I just interviewed Robin ORS on yesterday. It's not even up yet. I saw that. And she's, you know, I mean, she rides that bike, like a, like a lunatic. And she's, she's okay. She's going crazy. And she just had a baby. She did. Yeah, she's a new mom. And yeah, so that's what I think of restrictions. So I keep hearing Tommy cough Is he is he got the struck by the rubella? What's going on over there?

Heather 38:23
No, I don't. This whole household is going through this. That's my voice is kind of

Unknown Speaker 38:29
people at school sick because of it. Now I got mom sick and she's never sick. Because she's got a whole bunch of stuff to do today.

Scott Benner 38:38
Little Typhoid Mary. She's,

Heather 38:40
I don't know. I think it's like the spring cold, I guess. I don't know. Like, we never get sick. I mean, I I feel like I see every illness ever. Right? You know, being where I work. And my kids both go to public school. Like, I feel like we're good. But for whatever reason, this one got us

Scott Benner 39:00
started. The other day, she was at school and she she texted me and she said the tire is low on the car. She talked and she's like, I need somebody yet to come over and put air in it before I leave. I don't think I should drive with like this. And so I happen to be in the parking lot pumping up Arden's like car tire when she walked out of school. And she had this like fun, like kind of fun, like playful face on. She's like, I just got out of there she goes. So many kids have a stomach bug. I held my breath through the hallway. Here too. Yeah, it's all over the country right now. It seems like it's so weird.

Heather 39:33
Yeah. How have you knock on wood? Haven't got that one. Like my biggest fear with him? I can't. We haven't ever crossed that bridge. So

Scott Benner 39:43
I just don't want to be sick. And, and I know I don't know about Arden. Arden doesn't usually get sick that way. But you know, just he doesn't either.

Heather 39:53
He's always respiratory. He's always like, cough or throat or you know, Dentist tonsils out when he was, I think five. Oh, wow. Yeah. He's always had. That's what I feel like maybe pushed it I guess because they always say you know some kind of you had strep forever. I mean, four or five times a year he would have strep. Really? Yeah. Until I got his tonsils out at five and he's never had anything sense

Scott Benner 40:24
do you girls have? Have you ever checked them for anybody's done try? We

Heather 40:30
did We did try on it. Yeah, we did try on it like the first month pretty much like I think I ordered it while I was in the hospital. And then they're both negative. But my oldest has celiac.

Scott Benner 40:46
Oh, okay. Oh, so that is so there is autoimmune in your family then? Because I guess Yeah, I never think of that. I didn't know I I know people,

Heather 40:54
like moms, grandmas. I don't ever think of my kids.

Scott Benner 40:57
But tell me a little bit about the her celiac diet because we were actually talking the other day about having Arden eat gluten free for just a couple of weeks to see if it impacts some things that are going on with her. Was it much of a transition? When did you when did she start eating that way?

Heather 41:16
We've probably been eating that way for over a year now I would say. And we did it initially. She's always had gut issues. Like ever since I can remember. I mean, not as a young child, but in like, like, puberty, I would say is when it like, actually came to she doesn't go regularly at all. So she's always had gut issues. I never went the celiac crowd when she was younger. Because in my brain celiac is like diarrhea and you know, the opposite of her issues. So I never thought that. And then she brought it up. She's 19. So she was probably 17 or so. And she's like, I think I want to try gluten free and I was like okay, like it's pretty easy nowadays, you know? So we did and it helped a lot. And then she went and got the antibody test and it was positive. So now we're waiting on a scope. Okay. They want to scope her she was admitted for colitis to the hospital. Oh, I would say eight months ago or so. And then that sparked the that sparked the the endoscopy,

Scott Benner 42:41
okay. Hey, would you like there's what was that good? I'm sorry, finish your thought.

Heather 42:47
That was just the, you know, they she finally could get the referral and started believing us kind of thing. Yeah. So then the doctor her primary was like, Okay, I'll do the antibody tests that came back positive. So now we're waiting on the referral.

Scott Benner 43:01
I say can you talk a little bit more about the symptoms that led her to think gluten?

Heather 43:07
She had like really bad spasms in her stomach after she would eat, you know, a lot of pasta or bread or, or whatever. She, but constipation was a big one. She has to have fiber. Like, all the time. I mean, the girl takes more fiber than you know, my 90 year old grandma. Yeah. So about the pain was a big one bloat. She has bloating really, really bad. I mean, the girls, five, five and 100 pounds and she looks like she's three months pregnant after she eats a piece of toast. Okay, that was a big one. Sometimes she would get rashes. Like depending on the type of gluten, or like, I guess not the type of gluten but that the source that the gluten comes from, um, she would get like a rash. And I always thought it was like a topical thing like she would touch something or, you know, like dermatitis, not like actual allergy. So I would just treat it with Benadryl that would go away. And then but now, looking back, it was all gluten free forever.

Scott Benner 44:20
Any tingling. Oh, headaches, any tingling in her toes? Like Like, like they felt feel like they fall asleep or anything like that.

Heather 44:30
No one ever told me that one. headaches. Headaches are a big one. Yeah, the headaches are pretty crazy. They like almost instantly went away. And no still has like gut issues like she still has like issues going to the restroom. But no rashes. No more headaches, no more bloating. None of that.

Scott Benner 44:51
You ever try probiotics to see if that might help her a little? Yeah. No impact.

Heather 44:57
She's 19 So she has Are things whether or not she takes them is up to her.

Scott Benner 45:04
So what kinds of things does she eat now that she's gluten free? You just get like substitute foods or does she make a shift and how she was eating and did the rest of you do it along with her?

Heather 45:14
We did not know. gluten free pasta is so gross. The bread is not the same. So we did not I cook two things usually when I when we make pasta or bread or whatever, I'll make her you know a gluten free pasta and or a gluten free bread. Yeah, Tommy doesn't mind it, but Tommy eats everything. Yeah, I

Unknown Speaker 45:40
don't mean anything. Honestly. Like there's barely anything I don't like like a mushroom. I don't really like those onions. That's like that's

Scott Benner 45:49
just really think about. Yeah, just a couple of things. You want me? Yeah, I really do think we're going to actually do it here. I'll do it with

Heather 45:56
there's a lot there's a ton of stuff nowadays. Like rice, quinoa, potatoes. Those are now her like main starches. But the biggest thing for me is so much stuff that you don't even know. So we sauce, teriyaki sauce, mayonnaise. Like it's all has gluten, your, your laundry soap, your body wash really literally has Yes. That's the kind of stuff that like I had no idea. So my best friend, she adopted a little girl four years ago. And she was having similar symptoms to my daughter. The headaches, the rashes. She was really, really irritable. She's four. So I think she was just in pain and like, it came out as irritability. She had the diarrhea portion. She always said she had a headache always that her belly hurt. So and then she the kid is sick all the time. I mean, like, if there's anything she will get it 100 times over, she gets it. And so I told my best friend like it's autoimmune. There's something autoimmune going on with her. And finally we got the doctor to order. bloodwork comes back positive for celiac. So she had her endoscopy with kids, I guess it just goes faster. I don't know. So she already had her stuff. And she's like pretty severe with it. So it's been a it's been a big learning curve for everybody. But it's definitely helped them both to take the gluten out of it. We even I mean, we went as far as like, you can't use like wood cutting boards because it will hold the like spores of the gluten. So we have like, all plastic or metal or, you know, no wood utensils, no wood cutting boards, stuff

Scott Benner 48:00
like that. So she gets a little bit of contamination she can tell right away.

Heather 48:05
The bait the four year old. My daughter is not as sensitive. But the baby. Yeah, she I mean, like for St. Patrick's Day, she goes to daycare, and it's my best friend. I'm 25 years. So it's pretty much my sister. So we do dinners weekly together. And we did dinner that night. It was we did you know, St Patrick's Day dinner and stuff. And she came home and I was like, What did you eat at daycare? Like, why are you acting like such a little turd? And she you know, nothing like I didn't eat anything. And I'm like, Okay, well then come to find out. She ate the little like gold, chocolate like coins. It was like a thing at daycare for St. Patrick's Day. And we googled it. And sure enough, there was gluten in it. And the next morning, my best friend called she's like Brittany has a rash. And I was like, Oh, it obviously had gluten in it. She really just I mean little stuff.

Scott Benner 49:00
Yeah, most of the things you're talking about, like reflect back that Arden experiences that but her celiac testing comes back negative she doesn't have antibodies. And so we're thinking of just maybe getting a scope, which just seems drastic, but that's why we were thinking about maybe just cutting things out to see if there's a shift. And then it was

Heather 49:22
it took a week I would say at the most for them both to Yeah, for them both to be like Oh, wow. Okay. Okay. Like it was it was pretty, pretty apparent for the both of them. Gotcha that it was, you know, and like my my oldest like, we we kind of just did it. And I was like if if it works, it works like even if it's nothing if you if it's negative and if it makes you feel better. It's so easy. Yeah. Yeah, it's, I mean, it's hard, like going out to eat and stuff. That makes it hard. Because you have to have like, designated fryers for Are for fries, because you can't put chicken nuggets in the same fryers, fries. And you can't you know, it's going out makes it harder. But at home and we don't eat out a lot. I mean, we live in a pretty small town, there's like two good restaurants. So once we figured out those two, like I'm pretty good now to eat locally, but we eat at home most of the time, and it's easy at home.

Scott Benner 50:24
Okay. So I appreciate the time it took a while, you know, I appreciate you sharing that with me. That's a lot of good information. Actually, about.

Heather 50:32
There's a ton of stuff on Facebook, too. Yeah. Like we follow like celiac parents of celiac or something like that. And it's, there's so much information on there.

Scott Benner 50:43
Okay. All right. Thank you. What else? Is there anything we haven't talked about so far that you wanted to?

Heather 50:49
I'm not I didn't really have my biggest thing was just perspective. That's why I emailed you. Like, Tommy and I listened to one of your podcasts on the way somewhere, I don't know. And I looked at him and I was like, at least your diagnosis story wasn't traumatic, like that kid. And he looked at me, he said for you. He was like, What do you mean, it wasn't traumatic? And I was like, Well, I mean, it wasn't traumatic. Like, like, we figured it out. And he went to the hospital. And he goes, Yeah, but

Unknown Speaker 51:19
I thought I was gonna die.

Heather 51:21
Okay. Oh, wow. Okay, like, I guess that's something that, like, we're so wrapped up as parents that like, I've never asked him. I never asked him like, Do you have any, you know, how was it for, you know, unquote, traumatic, you know, things? Or does this affect you differently? Like, I don't know how it affects him to wear a pump all day long? I have no idea. I don't do it. You know, like, it's just stuff looking from, and especially like, he's 12. He's coming into his own and has his own thoughts and feelings on things that aren't exactly mine. And having that perspective of your kid, I think is a big deal. And I'm a little bit better now about like, where do you want your pump site? You know, do you want to do it? Do you want me to do it like giving him a little more? Second? No. Yeah, saying it because it wasn't a choice. I didn't ask him if he wanted a Dexcom. I didn't ask him what pump he wanted. He was nine. And I don't know, kind of doesn't work like that in our household. Like, I'm the parent, I make the decisions. And you just nod your head and go along with it, you know, so I didn't really I've never really gotten his perspective on it, which now is more that he said that to me.

Scott Benner 52:42
That's a nice growth moment for you. And I understand, look, I understand not giving a nine year old a ton of say and what happens with medical decisions. But but growing along with it, and it's and I'm glad he shared that with you that I mean that every story doesn't have to be I'm thinking of the big ones from the podcast, right? One boy had to take a speedboat ride while he was in DKA. in a foreign country, and that poor kid who was diagnosed on the transatlantic flight. Yeah, like stuff like that. Like it seems, you know, it's more like an action movie story about somebody's diagnosis. But yeah, just, you know, go into the hospital and be in there on your birthday. And that's, you know, you're nine years old. It's a big deal.

Heather 53:25
Yeah. And that's, you know, I didn't Yeah, I don't he was never in DKA. He was never sick. He was never right. It was, you know,

Scott Benner 53:32
seemed easy to you. To me, right. Yeah. Well, compared to what you see at work, right.

Heather 53:39
That too. Yeah. And I think being a nurse, I'm not the most compassionate person. I'm kinda like, Are you bleeding? No, die? No. Okay. Go, like, you're good. So I, you know, I kind of have that mindset about it. But, I mean, there were like, magic moments for me. I don't want to say traumatic, because, I mean, we're fine. But like, more and more, you know, the 27 blood sugar, and, like he, I think had forgotten about that until I mentioned it. You know, he's sitting here he's like, oh, yeah, right. So like, that obviously didn't seem like it caught me.

Scott Benner 54:15
Yeah, well, it's a different that's again, perspective, like he's low, he doesn't know what's happening. You're the one who's staring at the number and running over the scenarios in your head and the expectations of what may be about to happen next and that's frightening. You know,

Heather 54:31
yeah, when I I've seen a diabetic seizure way too many times. You know, and that's all I can think about. I think obviously at that point, he's just like, the world is spinning what is happening you know? Yeah, also,

Unknown Speaker 54:46
I'm like about the birthday think I at least I had a good birthday like, because we had a birthday party after because my mom was bad at everything there. Well, Chuck, I can have the cupcakes but that's fine. Yeah. cuz we had a game truck and all the stuff that I wanted. It was definitely cool. It was.

Scott Benner 55:07
Tommy, do you think you got a guilty birthday from your parents because they felt bad about your diabetes? Or was that about a regular birthday party?

Unknown Speaker 55:13
Definitely. Definitely not regular like crazy. I had like a bajillion friends over. It was so much fun. I got so much stuff. They had like a game truck and I wasn't really in the game for that much though.

Scott Benner 55:29
How they're looking at you paint yourself like a tough parent. And then you had you were like, how do you get the credit card? We're gonna make this boy yes circus for his birthday.

Heather 55:38
I will say I will say the game trip was already planned. That was already a done thing. We just moved it to the weekend after but he did get. My thing is like you want a birthday party or a big person. Unless it's like, a big birthday, you know, 1316 18 kind of thing. So he was like, I want a birthday party. Because he was nine. So it wasn't like a big one. Well, then, after all that I was like, Oh, he's getting everything.

Scott Benner 56:05
I'm gonna I'm gonna make you feel better and tell you that the year after the year after Arden was diagnosed, we put a waterslide in our backyard and inflatable. It might have been 50 feet.

Heather 56:16
Yeah. I don't know. It was hard. I felt so bad. We tried to we tried to make it good. You know, I had like the grandparents came and we opened presents and, you know, had a banner in the room. So everybody that walked in, knew it was his birthday. That kind of stuff. But I mean, that's never a fun. Never fun for a kid. This kid is so resilient though. It's crazy. I mean, he's, he's so go with the flow. And he's just easy. If it was my girls, I don't. I would still be in a corner crying. I

Scott Benner 56:47
think three years later, you don't think they would have handled as well or?

Heather 56:51
No, no, I don't think so. He I'm telling you is has it has never stopped him. He has never. It's never gotten him down or been sad, or I can't because of diabetes or nothing. I mean, and he he's on the soccer team. And the track team currently. Yeah. And he runs cross country in the beginning of the year. That kid is up at 6am Every, every day. He's at practice by seven he practices until 830. Goes to School from nine to four. He has practice after school of the other sport. from four to 530. Comes Home does his homework eats dinner. I mean, like, he's constantly going and and he's never He never complains. Never like, You got to change your site today. But okay, we got to change your decks. All right. There's I mean, it's, that's awesome. uses me for sure. Yeah, he's, yeah. And what, you know if I think he's growing, I think I just upped everything yesterday. But the last week or so he's been so hot. I mean, it's so high, so high. I mean, 181 60. But, um, and like, stubborn, you know, so stubborn. And so I'm like, Hey, tonight, we're gonna like kind of low carb ish. And then he can't eat carbs for breakfast. He eats at 630. We're out the door by 650. And he's at practice by seven. So I can't have insulin on board when he goes to practice. Oh, eat no carbs in the morning. And I mean, maybe 510 at the most. But I mean, nothing. He doesn't complain. He doesn't. Oh, I want this or Oh, why can't or you know, whatever.

Scott Benner 58:33
Has he always. Has he always been like that. Yeah.

Heather 58:36
Always. Yeah. Good. He isn't the like, easiest. It's well, he is now but in elementary school and stuff. He was a little stubborn for the teachers and stuff. But he's not now. He's not like that anymore. I think he's learned that consequences come with stubbornness. So he just kind of skim it in like that go. Yeah. But he's always just been really easygoing.

Scott Benner 59:06
I have a couple of minutes. Is it possible? Could you hand that to Tommy, can I talk to him for a couple minutes?

Heather 59:11
Yeah, yes. Cool. We're just gonna add air pods or switching. Alright, thank

Scott Benner 59:15
you. Thank you. Um, hey, man.

Unknown Speaker 59:22
Okay, there we go. Hello.

Scott Benner 59:23
Hey, can I ask you a couple of questions? Day to day. Do you think about diabetes with any kind of frequency or is it not something you're constantly thinking about?

Unknown Speaker 59:34
I honestly don't think about it enough. Like I feel like sometimes. I like totally 100% Forget everything. Well, not everything but sometimes I just straight up forget.

Scott Benner 59:47
You count on your mom to kind of keep you focused. Yeah. A lot. Yeah. All right. Are there times where you handle things on your own and then tell her about it or do you Oh, Always wait to confer with her before you do something.

Unknown Speaker 1:00:04
Like in school? Yes. But not usually sometimes I'll wait to confirm and sometimes I won't.

Scott Benner 1:00:11
Do you have any problems while you're doing any of your running? How do you manage your your blood sugar's like during soccer cross country and things like that.

Unknown Speaker 1:00:21
I just got to keep it steady. Like if I'm steady going into it or like, don't have any insulin on board, I'm good. No, I'm good, like 100% with running, I'm really good with all that type of stuff.

Scott Benner 1:00:32
Okay, so you don't have to eat before you run. You just make sure you don't have active insulin.

Unknown Speaker 1:00:38
Sometimes, but the biggest thing about it is just No, no insulin on board before like doing exercise.

Scott Benner 1:00:44
Gotcha. How, let me think, how do your friends interact with you about diabetes? Do they? Or do you not really talk about it with them either?

Unknown Speaker 1:00:54
Well, my friends just kind of just they know. And then that's, that's that some people will like, they'll bumped into me and feel my Dexcom or they'll see my, like, my pump string. They'll be like, what's that? And then I'll explain the whole thing. And they'll be like, Oh, that's cool. And then just kind of move on with their day.

Scott Benner 1:01:11
Yeah. Now you sound like you don't give it a ton of thought. Does it ever make you sad? Have you ever had a moment where you feel like I wish this wasn't happening? Or do you generally don't think about that way?

Unknown Speaker 1:01:24
No, never. Like, I honestly think it's just another roadblock for me to have to get through.

Scott Benner 1:01:31
Yeah, that's crazy. Are you? Are you good at school? Do you like do you like school? Or do you hate it?

Unknown Speaker 1:01:38
Oh, well, honestly. It's school. I mean, I don't really like it. But I have my friends there and stuff. So yeah, in elementary school, I hated it to death. But I'm better now. Like it's, it's all right.

Scott Benner 1:01:50
Right? How is it having an older and a younger sister?

Unknown Speaker 1:01:55
Tough. Like, I wish I had a brothers but from everyone else's perspective. They say brothers are terrible, but I don't believe them.

Scott Benner 1:02:02
You don't believe that? Does your do your sisters mother you do they treat you like they're your mom?

Unknown Speaker 1:02:07
No, my younger sister. She's just super super attitude. She just sees me in the family. Grumpy. My bigger sister. I love her. She's She's awesome. She's just I know her a lot, though. Like a lot a lot. Like I could just say words, like, Oh, you're so annoying.

Scott Benner 1:02:28
Don't worry, that'll go away. And like 10 more years, maybe. There's a long time. What else? Is there anything about diabetes that you would want people to know?

Unknown Speaker 1:02:42
That because a lot of people I know this isn't really something that you should be affected by. But I find it really annoying when people like Oh, so you just ate a whole bunch of sugar. And you just are like, super sugary and sweet. And that's why diabetes. Like that's like, what upsets me? I'm like, No, I didn't eat sugar. I was born with it. Like,

Scott Benner 1:03:04
do people say that to your face? Like, have you heard like, have people said that to you? Or is it something you hear kind of in media and social media?

Unknown Speaker 1:03:12
A lot of people know that some people are sensitive by that. So they're not really just like, open to being like, but some people and they're trying to like affect me or something they like I usually don't have diabetes, but that that's what gets me a lot. Like I'm like, dang,

Scott Benner 1:03:28
they just use it to pick on you when they need something.

Unknown Speaker 1:03:31
Yeah, when they don't have any comebacks they use that. Maybe Tommy,

Scott Benner 1:03:34
it's just thought you're so cool. They can't find anything else to make fun of maybe.

Unknown Speaker 1:03:40
Yeah, and I literally like sat in bed one time and just thought of comebacks to get from that one thing.

Scott Benner 1:03:49
Got yourself some pre recorded pre recorded comebacks in your mind. Now you're all set. But so but to go back for a second about that idea of like, Oh, you must have eaten too much sugar. Like is that like, has anybody said that to you? Or is it just the thing you hear sometimes that? Does that make sense? Like are you hearing it? Like, is it other people's concerns? Or other people saying, I hate it when this happens? Or is it actually happened to you?

Unknown Speaker 1:04:16
Um, like, not usually people, people, usually they don't know what type one is. They just like know, type two. So like, Oh, so you just ate sugar. It's not usual though. Because they know like, some people are sensitive about that stuff. Like I was saying earlier. Yeah.

Scott Benner 1:04:32
Do you? Are you ever afraid that people will think you have type two? And would that matter to you?

Unknown Speaker 1:04:38
It doesn't matter too much. But if they do say that I'll because like sometimes it annoys me. I'm like, Do I really look like them? ate too much sugar and stuff. I'm like, Well, no, not usually.

Scott Benner 1:04:52
Okay. All right. I appreciate that. Oh, well, I appreciate you answering my questions. Thanks for doing this did. Did you have a good time watching your mom get an interview? Yeah, yeah. How was she is a mom pretty good? She can't hear me right?

Unknown Speaker 1:05:04
Amazing. No, she can hear you. She's. She's awesome. Awesome.

Scott Benner 1:05:10
That's excellent, man. I'm really blessed. That was really nice to talk to you. Thanks for taking a second and jumping on.

Unknown Speaker 1:05:16
You're welcome. Thank you for talking to me. And I'm like, this isn't cool. Like, you know, like the one person I look up to like, it's super cool. Wait, I am. Yeah, like you, you. You're the person that I like. You taught my mom's so much stuff. And I'm literally talking. favorite person? Like it's super celebrity in

Heather 1:05:40
this house? Yeah.

Scott Benner 1:05:42
Well, Tommy, listen, if you ever want to come on the podcast and do your own episode, let me know. Okay. Oh, okay. All right. We'll find out we'll talk about like important things like, you know, girls and sports and stuff like that. Oh, okay. Well, very nice. Thank you so much for so it was really kind of you. I didn't expect you to say that. I really appreciate it. I I'm glad the podcast is. has been really good for your mom. And then for you too. I'm thrilled. Actually. That's wonderful to know.

Unknown Speaker 1:06:11
Yeah, it's it's nice to know that I'm seeing by someone that's literally like a god in this house.

Scott Benner 1:06:19
It's very strange. All you understand, Tommy. That's a weird thing for me to hear, right?

Heather 1:06:24
diabetes God,

Unknown Speaker 1:06:26
like yeah, not like a weird way. God just like, super cool. Super cool.

Scott Benner 1:06:32
My family's gonna make fun of me if they ever hear you say that. You know that right? Oh, gosh. All right, man. That's really wonderful. If you want to put your mind back and I'll say goodbye to her. Yeah, sure. Thanks so much. Hello. I didn't know I was gonna get called God or I would have talked to him a half an hour ago. I mean,

Heather 1:06:52
you know, I emailed you like, I don't know, probably a year ago and was like, I'm lost. I don't know what to do. I can't, you know, blah, blah. Pretty much all you told me it was more. Of course. I just needed someone I guess to tell me that. But I had you on speakerphone. And both of the little kids came running in and they were like, because I know your voice from the podcast. It was it was pretty funny. So strange. They came running in they're like, is that Scott? I was like, yes, it's it's hot.

Scott Benner 1:07:20
Well, I might one day get used to hearing that. But today is not that day. So I'm again, you know, obviously I'm I'm so happy for you guys and how things are going so well for you. And he seems like maybe the most level headed well adjusted 12 year old I've ever met in my life. So

Heather 1:07:35
yes, he's a pretty awesome kid.

Scott Benner 1:07:37
No kidding. All right. Well,

Heather 1:07:38
I don't know. I don't know what I did. I think it's more hidden but

Scott Benner 1:07:42
we'll just tried to find something to take credit for. And

Heather 1:07:45
I burst him I guess I can I'll take that one.

Scott Benner 1:07:47
Yeah, just just started the big things. Well, I thank you so much for taking the time to do this. I really appreciate

Heather 1:07:53
it. Of course. Thanks. Have a good day. You too.

Scott Benner 1:07:58
A huge thank you to one of today's sponsors, GE voc glucagon, find out more about Chivo Capo pen at GE Vogue glucagon.com Ford slash juicebox. you spell that GVOKEGL You see ag o n.com. Ford slash juice box. I'd also like to thank Heather and Tommy for coming on the show. And of course, US med to get started with us med call 888-721-1514. Or just go to my link us med.com forward slash juicebox. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.

If you're enjoying the podcast, please share it with someone else who you think might also enjoy it, show them how to get into their podcast players who are into Spotify. And they hear just you know, click on this then you're following or you're subscribing depending on the app. These are the things you could tell these people. And please if you're listening but not subscribed and an audio app, oh goodness, could you please do that for me? Spotify, Apple podcast, Amazon music, the list goes on and on. Anywhere you get audio you can find the Juicebox Podcast last little bit if you're looking for a community around diabetes look no farther than Juicebox Podcast type one diabetes on Facebook. The group now has over 30,000 members and there is a conversation happening right now that pertains to you. I guarantee it Juicebox Podcast type one diabetes on Facebook

See this gallery in the original post

Please support the sponsors

The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!

See this donate button in the original post