Arden's 10th Anniversary JDRF Walk

Arden was diagnosed with type 1 diabetes just after her second birthday in August of 2006. That October we participated in our first JDRF Walk.

View fullsize

First Walk 2006, Age 2

Yesterday we walked for the tenth consecutive year...

Arden designed her own walk shirt this year to mimic a softball t-shirt. Big thank you to OmniPod for being cool with us using their Podder logo to make the shirt. It was a great day, the weather was perfect and a ton of Arden's friends and teammates came along in support.

i'm trying to decide what to do with the extra shirts...

---

Arden's Nine Year Diaversary

On this very date, some time after midnight in 2006, I remembered something that I meant to say to my wife Kelly but forgot to earlier in the day. Arden was two years old, we were on a family vacation and she had been very sick for days. Our family was gathered around a table playing a board game late at night, Arden was sleeping on Kelly's lap.

"Arden’s breath smells funny, metallic or maybe sweet..."

Moments after I spoke those words, all sense of joy left our world. A few hours later Arden was diagnosed by an ER doctor with type 1 diabetes. 

One year later as the anniversary of that night approached, I started writing on the Internet about my life as the father of a child who lived with type 1. I posted my first blog at 3 am. I spoke in that first post of a high BG that was over 220 and I talked about that number like it wasn't really that high. Back then our diabetes technology consisted of a small meter and not much else, I was scared, our technology was lacking and 220 seemed safe as she slept. Safe in the short term that is.

Much thankfully, has changed since then...

Tonight Arden is sleeping in her bed, BG is 78 and steady. I'm bumping it up before I go to sleep with a short temp basal decrease on her Omnipod, I'd like to have it at 95 before I finish writing this. I'm watching her blood sugar in real-time on my iPhone at the moment. Again, much has changed in nine years, no more sneaking into rooms like a vampire.

My daughter has had type 1 diabetes for nine years and I've been sharing my life as her father for eight of them. I've seen this blog help many families and I have a sincere hope that it will help many more. Arden has always been generous and allowed me to share my experiences without reserve. Aside from the occasional request to leave out a detail, she lets me tell my story in the hopes that something we have learned or lived through may help you. I got my joy back years ago and I don't want you to be without yours for a second longer than you have to be. I believe very much that community support in all its forms, is key to finding balance and recapturing the joy you felt before diabetes arrived.

But my story is her story and she's made a request...

View fullsize

Arden no longer wants this blog to be adorned with a header image that depicts her as a four year old. A reasonable desire, I'm sure you agree. She made this small request at the beginning of 2015 and since then I've been working with an artist that I love to replace the art that is at the top of the blog, on Facebook, Twitter as well as my social media badges. The banners, profile images and Juicebox Podcast cover art are nearing completion and should begin popping up in the coming weeks. The artist has created a representation of that sweet picture of a four year old Arden, the one in the yellow top, that is reminiscent of the original. It was my goal for current readers to be reminded of that image and for new readers to not see Arden as a four year old.

Moving forward my goal for this blog and my new podcast remains the same as ever. I'll live my life as well as I can and when something happens that I believe would help you to live yours, I'll share it here and on the podcast (Which you guys are being so supportive of... thank you!). A podcast, a lot really has changed in nine years.

By the way, Arden's BG is now 98. I temp basal'd that low away like a champ... but then I've had nine years to practice.

Until there is a cure, I'll be here if you need me.

---

Ardens 9th JDRF Walk

Arden was diagnosed in August of 2006 and we participated in our first JDRF Walk two months later. Yesterday was Arden's ninth consecutive walk, and this year we did things a little differently.

We tried not to squint but the sun was strong!

In the past our group has been seventy people strong, other times we've walked with a dozen friends, six people came one year, we usually have team shirts – yesterday it was just us. We didn't invite family or close friends, never sent an email or made a post on Facebook announcing the walk, heck our son even had something to do and couldn't make it for the first time.

Yesterday Kelly, Arden, myself and one of Arden's friends (Hi Jamiee) made our way on a windy and cold morning to the take the walk that has meant many different things over the years.

The first year we were still in shock from Arden's recent diagnosis when we went to the walk out of, what could be described as, a manic desperation to cure our daughter. Year two felt like giving back to the people who were diagnosed after Arden and we put so much effort into fund raising for the first five years. Over time the walk has been a celebration, a call to arms, always an opportunity to spread awareness, but yesterday I found myself reflecting for the first time.

Arden and Jaimee

"Can you believe this is our ninth walk?", I asked Kelly. See replied, "Can you believe Arden is ten years old... and how is our son fourteen!?". Time certainly does fly!

Here's Arden in 2006 at her first walk

The walk began on Sunday, as it always does, with a slow descent down a hill that this year was lined with signs that were adjourned with kid's faces and the details of their length of time with diabetes. When we reached Arden's sign my heart filled with an odd blend of pride and sadness. I wondered to myself how it was possible that in just one more year, we'd be doing this for a tenth time. After we took a picture of Arden's sign, she and Jaimee spent the walk on their scooters as Kelly and I strolled behind them enjoying the fall air (except for when a girl in front of us lit a cigarette - why?) and chatting. Early in the walk I shared with Kelly that I almost cried thinking about how long we've been at this diabetes thing and Kelly reminded me of the year that Arden wouldn't accept being held because she thought she would have to refund her donations if she didn't finish on her own. Overall I tried not to give type I too much of my attention, opting to enjoy our time together in the beautiful park. 

Kelly and Arden

Kelly and I did talk for a while about the possibility of making Arden's tenth walk into an event. It was nice to have this year to quietly walk alone, but I'm hopeful that next year will find us back with a huge, raucous group, because despite enjoying the low key nature of our morning - we missed everyone.

Maybe we'll see you next year for Arden's 10th JDRF walk!