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Podcast Episodes

The Juicebox Podcast is from the writer of the popular diabetes parenting blog Arden's Day and the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad'. Hosted by Scott Benner, the show features intimate conversations of living and parenting with type I diabetes.

Filtering by Category: Jenny Smith CDE

#616 Defining Thyroid: Hypothyroidism and Hashimoto’s Thyroiditis

Scott Benner

Scott and Jenny Smith, CDE share insights on thyroid disorder.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Amazon AlexaGoogle Play/Android - iHeart Radio -  Radio Public or their favorite podcast app.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, welcome to episode 616 of the Juicebox Podcast.

In 2019, The Endocrine Society said that thyroid dysfunction diabetes mellitus are closely linked. Several studies have documented the increased prevalence of thyroid disorder in patients with diabetes, and vice versa. It is with that in mind, and in the spirit of the defining diabetes episodes. This is the first in a series with Jenny Smith and I, where we will define the terms that you need to understand to deal with thyroid dysfunction. And please, if you're thinking right now, I don't have any problem with my thyroid. Just listen to them anyway, because some of the symptoms mask themselves as normal everyday maladies. Just please listen, they're just a couple of minutes long and you might need them down the road if you don't need them today. It's important. Please remember, while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin.

If you're a US resident who has type one diabetes, or is the caregiver for someone who has type one, you could take the survey AT T one D exchange.org. Forward slash juice box in fewer than 10 minutes. When you do this, it will be completely anonymous. They will be HIPAA compliant, you will be helping people with type one diabetes, and you will be supporting the podcast T one D exchange.org. Forward slash juicebox. If you're looking for the defining diabetes series, they're available in your podcast player or at Juicebox Podcast calm. At that website, you'll also find the diabetes Pro Tip series. Ask Scott and Jenny. The diabetes variables episodes, after dark episodes, algorithm pumping based episodes, how we eat series. It's all right there. It's either in your podcast player, or at juicebox podcast.com. At the end of this episode, and at the end of every defining thyroid episode, I will list the symptoms of hypothyroidism, hyperthyroidism, and Graves disease. I think that one of the episodes of the podcast that I'm very proud of, besides the ones that we've done together is number 413. It's the talking about thyroid disease in general with Dr. But I think I'm proud of it because it's complete and thorough. It's easy to listen to. But moreover, I think this is something that might be happening to a number of people and they don't know, or they don't bother to look into it. Or in the case of a person I met more recently, it was in my private life. I forget we were together somewhere. And this person was like I'm always cold. Bla bla bla, like, you know, she just said it a couple of times next time I saw her. I said, Hey, you said the last time we were together, you said I'm always cold hands and feet. And she goes, Yeah, my whole body. Sometimes they said, Do you have trouble getting arrested? And she said, Yeah, and I'm like, no matter how much you're asleep, you just never feel rested. She goes right, right. And I said, Listen, you know, I don't want to be the bearer of bad news. But I think you have hypothyroidism. And a simple blood test would tell you if this is the case. And if it is, you would take this tiny little like hormone replacement, you know, and you'd feel significantly better. And the vibe I got from her was weird. It was there's nothing wrong with me. I'm not sick. I don't, I'm not gonna do this. Right. I thought I felt very sad. Because I mean, three of the four people in my house, take a thyroid medication in the morning, or in the evening, with the case of one of them. It's not a big deal. And it's significantly helps them and I thought I wonder how many people just think, like, I'm older now. That's why I or you know, my life is hard. That's why I can't get rested. And I mean, right, so many people with you know, autoimmune disease, listen to this podcast. I wanted to take a chunk out of the time that I have for people and make sure that they understand, you know, a thyroid condition so that maybe they'll think to take care of it for themselves. Well, and it's

Jennifer Smith, CDE 4:41
really applicable in terms of autoimmune thyroid disease, it's very applicable. If you live with any autoimmune disorder, you are more likely to potentially have another one. Right, right. So and thyroid disorder and type one are very common. commonly linked together. So, again, I think you're also right on the I don't know how many people are undiagnosed, that really depending on what their levels come back like, and or if they're even being tested, right. And you might glance sort of mentioned something in a visit with your doctor. And unless they catch that, or like this person who's talking to you, it says it a couple of times, it may be completely dismissed.

Scott Benner 5:30
If I wasn't me, and this wasn't my job, I wouldn't have, I would have just thought that girl's hands get cold. You know, you don't I mean, like, it never occurred to me. And I think to that. The other problem is that even if you have seen this happen, I was once helping a woman with her child who was in the hospital. So her kid was in the hospital, she had the kid had type one. And she was trying to figure out the insulin because the hospital just wasn't like helping and things were getting worse and worse. Sure. And while we were talking, it became clear to me that the mom, you know, something happened, it was about insulin usage. And I said, does she have Hashimotos? Or, or hypothyroidism? She's like, I'm gonna ask them to test. And they did. And then during the conversation, she said to me, you know, all that stuff you described to me, I feel that way, too. Ah, and I was like, okay, and then she tested and she sent me an email months later and said, I, you know, I have it too. And I'm taking thyroid replacement now. And I was like, you know, I just wonder, I don't know, it's such a simple thing, because then, you know, she got it sorted for herself. But you know, she had trouble with a child, when the child was in the hospital because of the whole, you're in range problem, where you when they they measure your TSH, and then you're like, some, some institutions, if you're not over 1010, they won't give you medication, they'll start me know, maybe around eight, but in this one to 10 testing, you know, zone. We found that my son had significant medical issues when his TSH was over two. And so interesting. Yeah. And so

Jennifer Smith, CDE 7:13
as the reference ranges, much wider, the reference ranges between like point four and like five, depending on what doctor you're talking to, and what you know, lab did the results and gave you the normal range and everything so

Scott Benner 7:27
well. Well, Dr. BENITO manages, but the people in my family to keep their TSH under two. And it's a and they're not hyper. And see now here's the thing, we've been talking for three minutes, we've used words like hyperthyroid, hypo thyroid, Hashimotos, you know, all this stuff, but you know, thyroid replacing hormones, I want people to understand what they are. Right. So my what my hope is that these episodes will be short, digestible, and either make people think, ooh, I might have that, or my kid might have that. Or if they know they have it. I hope it helps them believe. Maybe I'm not being medicated correctly, because I still have some of these symptoms. So I appreciate you doing this with me. Cool. Yeah. Well, where should we start? If you like?

Jennifer Smith, CDE 8:14
Ah, well, I think I mean, if we started with just the list and went down, did you you didn't. I was gonna say, I was gonna ask if you actually like alphabetize these

Scott Benner 8:26
I believe they were in alphabetical order, but I just moved them around. I started sorting them and putting them together. Like for instance, I put, you know, Hashimotos and hypothyroidism together. Right, I started putting TSH and thyroid storm THX testing and thyroid stimulating hormone I put together that kind of thing. So I mean, I'm just trying to think of it functionally for people listening, like what do they want to know? First, we just define Hashimotos. And hyperthyroidism may be in one episode. Sure. Does that make sense? Yeah. Okay, now, I'm going to leave this in so people can recognize.

Jennifer Smith, CDE 9:05
Recognize that we don't pre plan any discussions, right?

Scott Benner 9:08
It's pretty much like a road rally race, like we just got in the car, like we're supposed to go to California.

Unknown Speaker 9:14
Okay, where where's the map? Let's

Scott Benner 9:16
figure it out. So why don't we just start with, you know, the idea that Hashimotos thyroiditis and hypothyroidism while they will, are not necessarily the same thing, and we might even be hammering through some of my understanding. So let's start with hypothyroidism. Tell me what it is.

Jennifer Smith, CDE 9:36
Well, it's essentially a condition where the thyroid doesn't make enough thyroid hormone, right? I mean, that's the easiest definition of hypo thyroid. And so we need a certain level of thyroid hormone to essentially maintain sort of metabolic things in our body, right. They play important roles in weight. temperature management and how strong you are and how you feel energy levels and all of that. So

Scott Benner 10:06
it is hypothyroidism and Hashimotos two different things or does Hashimotos create hypothyroidism?

Jennifer Smith, CDE 10:18
It's kind of like a chicken in the egg right? Well, you know, antibodies tests can be done to determine the hypothyroid like definition. You know, the, the condition right? Hashimoto is is relative to an antibody or an autoimmune disorder. Okay. Whereas hypothyroidism without from what I understand without the antibodies present, hypo thyroid isn't Hashimoto.

Scott Benner 10:51
So a person can have hypothyroidism but not have an autoimmune disease. Yes. Okay. All right. But but if you have Hashimotos, well, let's let's define Hashimotos thyroiditis, then, like I have it as inflammation of the thyroid gland described by Dr. Hashimoto, it is the it is the most common cause of hyper hypothyroidism.

Jennifer Smith, CDE 11:14
Correct. And it's actually eight times more common in from what I remember eight times more common in women than in men.

Scott Benner 11:22
And it's one of those things that anecdotally, from talking to people. So I do this thing, I hope people don't get bored by it. But when I interview somebody, we're not talking about something specific. I always ask about auto immune in their family. And you'll be surprised how many people go no, no, no, there's no auto immune of my family. You go celiac hypothyroidism. And they go, Oh, yeah. And then the more you name, they're like, oh, wait, and then you find out there's 345 autoimmune diseases and their family happens a lot. Yes. You know, so I like to bring it up, because I'm trying to get a I'm trying to make the podcast a repository, you know, for for information. And I think that the one of them that comes up the most it's got to be it's a horse race between celiac and thyroid hypothyroid. Yeah, yes. You know, it's what I hear most from people. So hot. So Hashimotos. And again, go to Episode 413. To get a really deep dive on it. Dr. BENITO will explain it very, very thoroughly. But like, for instance, my wife has hypothyroidism. My son has Hashimotos. Okay, my daughter has type one diabetes, and hypothyroidism. My son has Hashimotos and no other issues, and no other issues. I mean, wow, I should knock on 19 pieces of wood. But, but

Jennifer Smith, CDE 12:51
my desk is made of wood on that guy.

Scott Benner 12:53
I appreciate it. And, and so my son's thyroid was immense imaged, I guess, MRI. And

Jennifer Smith, CDE 13:05
yeah, they do a kind of a scan and or a deeper imaging with dye and Yes, right.

Scott Benner 13:10
And she found some nodules on his, on his thyroid. At his age, I think we figured it out when he was about 21.

Jennifer Smith, CDE 13:19
Well, could she feel the nodules? Or could he feel them as well? Because often, I mean, from an endo standpoint, those with type one, which I know your son doesn't have, but from a standpoint of evaluation, they should be checking that low level in the throat and having you swallow. That's a first more visual sign that something is going on.

Scott Benner 13:41
And I'm just smiling because that happened, but it happened over zoom because of COVID.

Jennifer Smith, CDE 13:47
Oh, yeah. So there was no touching there.

Scott Benner 13:51
He was turning his head and doing weird things and jamming his face up to the camera and, you know, that kind of stuff. But yeah, so. Okay, so Hashimotos disease, when the immune system attacks the butterfly shaped gland of the neck, which is your thyroid, initially, inflammation of the thyroid causes a leak resulting in excess thyroid hormone, so you could get hyper thyroid ism for a little over time the inflammation prevents the thyroid from producing enough hormone hypothyroidism symptoms can include, I'll put all the symptoms I'm gonna put the symptoms in every episode, so we won't have to hear okay, so I I'm still, I'm very much more you know what, this is good news. I've always been a little like I'm not sure. And now I feel very clear. Hypothyroidism could come up in your life without you having an autoimmune disease. Correct. But you

Jennifer Smith, CDE 14:49
know, Hashimoto is is the most common form of hypo thyroid. Yes, but

Scott Benner 14:54
if you have Hashimotos thyroiditis, you're going to you you will then have hypo thyroid All right isn't at some point. Yes. Okay. We did that. That's good. Right? Cool. Yeah. See, see this disease. Jenny and I are just gonna jump right to the next thing. Maybe I won't even edit out all of our banter in the middle. I'll just when they pick up the next week, they'll hear us just go to the next thing.

Unknown Speaker 15:18
Be like those crazy people frequently

Scott Benner 15:26
for more episodes of The Juicebox Podcast and to continue with the defining thyroid series. If you like Jenny, she's for hire. You can find her at integrated diabetes.com She helps people with their type one diabetes, she really good at it. So if you're enjoying the Juicebox Podcast, and you're listening in an app, but you're not subscribed or following, please hit subscribe and follow on that app. And don't forget to tell a friend. Hey, if you find the podcast on YouTube, we started putting up animated versions of the defining diabetes series. They're really cute, great for kids. Very visual. Go find it. Alright, now let's go through the symptoms. We will start with hypothyroidism. Hypothyroidism signs and symptoms may include fatigue, increased sensitivity to cold, constipation, dry skin, weight gain, puffy face hoarseness, muscle weakness, elevated blood cholesterol level, muscle aches, tenderness and stiffness, pain stiffness or swelling and your joints heavier than normal or irregular menstrual periods. thinning hair slow heart rate depression impaired memory enlarged thyroid gland. In infants you're looking for a yellowing of the skin and whites of the eyes which is commonly called jaundice. In most cases this occurs when a baby's liver can't metabolize a substance called bilirubin, which normally forms in the body recycles old or damaged red blood cells. You also might see a larger protruding tongue, difficulty breathing, hoarse crying, or an umbilical hernia. As progression happens in infants, you may move on to constipation, poor muscle tone, or excessive sleepiness. Hypothyroidism in children and teens may indicate with por growth, resulting in a short stature, delayed development of permanent teeth, delayed puberty, poor mental development. That list is from the Mayo Clinic. Let's move on now to hyperthyroidism. This list is from the Cleveland Clinic. Hyperthyroidism may present with rapid heartbeat are palpitations, feeling shaky and or nervous weight loss, increased appetite, diarrhea and more frequent bowel movements, vision changes, thin warm and moist skin menstrual changes, intolerance to heat and excessive sweating, sleep issues, swelling and enlargement of the neck from an enlarged thyroid gland. Hair loss and change in hair texture. It would get brittle bulging of the eyes as seen with Graves disease and muscle weakness. Okay, back to the Mayo Clinic for Graves disease, you're looking for anxiety and irritability. A fine tremor of the hands or fingers heat sensitivity and an increase in perspiration where warm or moist skin weight loss despite normal eating habits, enlarged thyroid gland change in menstrual cycle erectile dysfunction or reduced libido. frequent bowel movements, bulging eyes, fatigue, thick red skin usually on the shins or tops of the feet. Rapid or irregular heartbeat palpitations, sleep disturbance. If you your child or someone you love has any of these symptoms, please seek medical attention. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.


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#612 Diabetes Pro Tip: Female Hormones

Scott Benner

Scott and Jenny Smith, CDE share insights on type 1 diabetes care

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Amazon AlexaGoogle Play/Android - iHeart Radio -  Radio Public or their favorite podcast app.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 612 of the Juicebox Podcast. This is also the next episode, the diabetes Pro Tip series.

On this episode of The Juicebox Podcast, Jenny Smith and I are going to be talking extensively about hormones, female hormones, about getting your period about riding the won't say that about shark week. You know that time of the month where your baby box is trying to kill you. And we're not going to just talk about your period, but we're going to talk about the lead up. And afterwards, the entire month really, and what you can expect as your hormones fluctuate and change. Please remember that nothing new here on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. We're becoming bold with insulin. Right now I'm considering putting a ton of euphemisms for a period at the end of this episode. Not sure if I will or not. It's all kind of up in the air. Hey, if you'd like to help out the podcast, head over to t one D exchange.org. Forward slash juicebox. If you're a US resident who has type one, or is the caregiver of someone with type one, I'd love it if you'd fill out their survey. It'll help people with type one diabetes, and it supports the podcast. This episode of The Juicebox Podcast does not have a sponsor. Not that I don't have a sponsor I could put on the podcast that I certainly have. But I just wanted to take this opportunity to remind you about the other diabetes pro tip episodes and some of the other series within the podcast. Can I do that? Will you give me a second? Thank you. At this point, the diabetes Pro Tip series consists of 25 episodes. This one of course, is female hormones. But there's also honeymooning weight loss postpartum, glycemic index and load. Explaining type one diabetes, pregnancy bumping nudge one bump and nudge to long term health emergency room protocols glucagon and low Beegees. Illness injury and surgery fat and protein exercise setting your Basal insulin variables the perfect Bolus, mastering a CGM insulin pumping Temp Basal Pre-Bolus, all about insulin, all about MDI newly diagnosed starting over actually listed them in reverse there for you. But you can find them right now at diabetes pro tip.com. There are 1,000,000% free, they're not paywalled. You can get to them and start them and stop them or listen to them as you would like. I'm going to tell you that I think if you listen through those pro tips, they're a pathway to an A one C stably in the low sixes or even fives. Everything I know about type one diabetes management to be important is in those episodes. And along the way, I always have Jenny Smith, there with me having those conversations, I'm going to tell you at the end of the episode all about Jenny, but for now just know, she's had type one diabetes for a very long time. She's a CDE. And a lot more. So head on over to Juicebox Podcast comm or diabetes pro tip.com. Or you can just go back in your podcast player to Episode 210 and start right there. I really hope you do. There's a ton of information in these episodes. I think they're very easy to listen to and even easier to understand. I hope you take advantage of them. All right. Okay, give me a testing. Hello. Alright, you're there. I'm there. Okay. Yeah. All right. So I've spent, not my whole life, you know, but the last number of days and weeks looking into all of this, trying to get ready to make a pro tip episode about female hormones. And it's a very scary proposition. There's a lot going on. I'm not scared, scared, but I'm overwhelmed. And then the last kind of piece of it was that I went on to the Facebook page and you know, said to people look, you know, throw out your questions for this episode. I want to be clear, I almost didn't think I needed their questions so that we could talk. I wanted to see if there was repetitive need, like, what are people like same questions over and over. And my goodness, I mean, it's kind of obvious, right, like so. The questions ranged from like, just God, is there any rhyme or reason to this to what about menopause? What about Hurry menopause. What about the time where my kid isn't getting their period yet, but it's starting to exhibit, you know, symptoms and having hormone fluctuations, talking about puberty and then pregnancy and then and then

is your head spinning post pregnancy? It's it's listen nature. God, I don't care what you think this is there's got to be a better way to do this. Someone, someone, this was an afterthought, like like someone at the end was like, oh, you know, here's what we'll do, we'll throw some eggs in here and then you'll have to throw in some estrogen to get the eggs really roll and then one egg will come out. And if they don't get pregnant, the whole thing will just bleed out of their vagina. Perfect. Like, I don't know who what. Oh, my goodness, PCOS keeps coming up. Is that polycystic ovarian syndrome? PCOS? Yes. Now I know those words. So already, Jenny, I want you to tell me what you just said before we started recording about the inequities of diabetes management from men to men to women,

Jennifer Smith, CDE 6:11
or from an education standpoint to begin with. I mean, it was not something that was ever discussed in my presence, at least and I don't think my mom had outside of visit conversations with my peds and know at all about hormones. Right. So I learned all of this as I was having this like, typical cycle, you know, that should happen after a certain point in the sort of teen years. And education today. It focuses on diabetes, in general, right? Not on if you're a woman with diabetes, versus if you're a man with diabetes, these are the differences that you will definitely see. So you're a woman with diabetes, you've got all the female hormones pumping in your body. Let's discuss diabetes from the angle of being a woman. Right? I mean, especially for my like, I would even say, when I start working with somebody, if they're from about the age 1011, all the way into wellness, even the women they work with into the perimenopause and menopause age, that's something in an initial visit, I always ask about, because if even if it isn't yet visible, it will be at some point. And people need an idea that they need to like, see out into, if I see this and this and this, I'm clearly not a crazy person. This is body function.

Scott Benner 7:44
Well, I guess especially given that, you know, because we talk about things in general terms, like the cycles, 28 days, that's in general, it's not, it's not for everybody, and it might not be for you from month to month as well. So if you can imagine when you hear people talk about like diabetes, like just when I thought I had it, it changed or you know, those memes, there's meat is it memes? Oh, my God, I'm old, you know, where it's like Monday, two plus two is for Tuesday, two plus two is seven, you know, Wednesday, two plus two was zebra like that kind of stuff. If that's already how diabetes feels to people in general, and then you put this on top. I mean, you really are kind of creating two different spinning layers of confusion that can impact each other, or show up on their own. And I don't know how you're supposed to make sense that I actually after going through all this, I have an idea I'll share at the end about how to get a handle on this. But I just don't know. Well, I guess to give people some context, Arden 17. So this is the depth of my understanding of this. My understanding of this is I'm married, I've lived with a lady for a couple of decades, and, and my daughter has diabetes, and she's been getting her period for a while.

Jennifer Smith, CDE 9:06
And I bet you never paid as much attention as when it really was in reference to diabetes management.

Scott Benner 9:12
Only thing I used to pay attention to was there's this what I call the nice day, there's like this. There's this. There's this literally one day a month, where my wife is a 1950s. Like, I'm making quotes perfect mom wife, Glover. Like it's that day on that day. I feel taller, more handsome. Like, you know, like she is so incredibly

Jennifer Smith, CDE 9:41
kind of like Leave It to Beaver mom, sort of at that age have an idea of what a Mom was right? Yeah.

Scott Benner 9:46
100% and I and I, I bask in that day because the day that comes after it. I can't even look her in the eye. Because if I do something wrong, she's the different like and then I Know that the the event is coming in about five to seven days. Like that's how it works for us paid enough

Unknown Speaker 10:07
attention to actually like I can tell you many, many spouses or partners.

Scott Benner 10:13
I thought I was gonna die. I was defending my own life, you know. And so for years, that's the only way I've ever thought about it. And then Arden starts to get her, you know, and then we're kind of rocking along taking care of Arden's blood sugar. Like, it ain't nothing some days, you know, it's just like, I do really have this all figured out. And then one day, she started getting her period. And it was all fine at first. It actually almost it got more difficult at some junctures. But it was, it was very structured. So I didn't have any trouble with it really. Right. And then all the sudden her periods got heavy. And you know, people listening will know that, you know, Arden went through a year or two of like us not understanding what was going on. She got anemic a number of times, she had to have iron infusions. This was all ended up being because of her period. Right? Yeah. So Arden would get her period for like, 11 days, like she'd have like a 11 day long cycle, and then only a couple of day break before she started to bleed again. It was just ridiculous. Which led us to put her on birth control, hoping, like, you know that she wouldn't bleed to death. Because she was, I mean, the impact on our life was insane. Sure, you know, and so first go round with the birth control they gave her it wasn't strong enough, didn't really do anything. But they still ask you to be on it for 90 days before they consider changing it. So you, you struggled all this time you think you have an answer, and then 90 more days struggling. And then they moved her up to another, I guess strength and that has, you know, straightened out her. Excuse me also, the first indication of that problem was nosebleeds. Oh, really bad out of nowhere. nosebleeds, right? That only happened once a month. And it took us a while to figure it out. It was literally happening on a cycle. I never was able to connect it to her periods. But the minute she went on the birth control and the second round of birth control, and it straightened out her periods. The nosebleeds never happened again.

Jennifer Smith, CDE 12:34
That's really interesting. Well, and I mean, again, a symptom that if you're paying enough attention to your body, there are lots of things that your body is trying to tell you. Yeah, right, if we just pay attention to.

Scott Benner 12:47
And it's why I bring it up, honestly, because part of what I figured out, Jenny, part of what I figured out being a man who doesn't get a period, and a person who doesn't have diabetes, as I considered talking about this with you today was was that you kind of have to, you got to kind of have to Jane Goodall it a little bit, right, like you got to take notes and step back and see things and keep wondering what's happening until you can build some some idea of like, I keep seeing this thing over and over again. And where does that fit on the calendar? And how does it work in relationship to, you know, bleeding or pain or insulin resistance, and then sort of start making sense of it, you have to track your period, maybe for six months before you'll be able to wrap your head around it a little bit,

Jennifer Smith, CDE 13:37
especially if your cycle is not regular. I would say for women who especially women who are considering maybe you're starting to track things and pay attention because you are planning a pregnancy, or maybe you're really trying to prevent a pregnancy. So then tracking things becomes just as important, right. But then along with the lines of even planning a pregnancy, the goal in diabetes is to have pretty optimized management prior to conception. So yes, I mean, you really should be tracking things for a fair amount of time, if you don't have them already nailed down because you've paid attention, right. And there are a number of really good period apps out there. I mean, there's some that are free that do just as well as some of the ones that have all the 1000s of bells and whistles for tracking everything else. But I think the ones that are the best actually have a place where you can keep notes. Because the tracking app that I like to use, I actually track month to month, how my insulin changes have looked this month. So I can go back last month, the month before and actually see, has it been consistent enough? Is it going along with what is normal for me? And that helps.

Scott Benner 14:52
Well, even very recently, in the last couple of months, Apple added a period tracker to their health app, which So interesting, robust, and it's free, and a lot of people use Apple phone. So I wanted to throw that out there.

Jennifer Smith, CDE 15:06
I didn't even know that was an option. So thanks. Yeah. So

Scott Benner 15:09
because Arden uses one that's third party, I don't even know what it's called now. But as I looked at people's questions, and I thought about Hold on a second. The gods are coming after me for talking about periods when I'm not a lady. That's right. As I thought about how I figured, like, like, step back and look at what we had to go through to try to figure this out for Arden. And then I looked at people's questions. The real fear, when you see fear is around the unknown portion of it. And all I could think over and over again, when I saw their questions like, How do I know if it's gonna fluctuate? When do I turn up my Basal insulin, if I can't be sure when it's gonna start? I kept thinking, you're gonna have to track it, you're going to have to pay attention, you're going to have to put like, work in. And I know, that sucks, because it feels like diabetes has already worked. But it really made me think about like, kind of what we talked about another pro tips, which is, you know, some upfront effort can save a lot of heartache, right, over and over again,

Jennifer Smith, CDE 16:13
or a lot more micromanagement than you really should need to be doing?

Scott Benner 16:17
Yeah, yeah, you get stuck in that situation where you're constantly constantly constantly adjusting your blood sugar. In the moment, which I'm, listen, I'm a fan of if you're lost, to stay flexible. But in this situation, where what was the number I saw the average woman's going to have how many periods like 400, and something or I was like, oh, like,

Jennifer Smith, CDE 16:40
hold on a lifetime? Well, I guess if you expect an average age of a period starting at the age of 12. And there are 12 months in a year, right? So you would have, let's say one cycle a year. And then the average time period of a cycle, completing would be about, let's say, age 12, all the way to maybe 55, let's say maybe even 60. And that's a good amount of time that you would be having cycle.

Scott Benner 17:15
I'm using your math 55 minus 12, is 43 times 12 months, is 516. There you go. So I'm saying

Unknown Speaker 17:24
that's a lot of tracking.

Scott Benner 17:28
I'm saying put in put some like real, like, it's gonna be honest effort, because you're gonna have to track you know, your insulin use every day. And, you know, just giving yourself I think, what helped me was just simple words. Difficult, easy. You know what I mean? Like, referring to my management, you know, meals were, what I expected, easier than I expected, harder than I expected. Yes. You know, my Basal seemed to work. Well, not Well, today, like just kind of keep it keep it like that. You make a little note for yourself. And I'll tell you to tracking your period is going to help you get better at taking care of your blood sugar, too, because you're gonna see all kinds all around. Yeah, yes, yeah, all kinds of things that you didn't, didn't see before. To begin with. You're

Jennifer Smith, CDE 18:13
gonna learn a lot of things too, in that time tracking for all of those other variables that we have to adjust around, right? Because I for one, know that my sensitivity, once I've gotten to about day three of my period, after that point, and until about ovulation is a really sensitive time. But it's more sensitive from day three to about like day seven ish. And in exercise, I have to be more aggressive and adjusting my insulin for exercise. Or I will go low. Despite my other tools and tweaks working outside of that. I will go low if I don't adjust more than I normally would, is that

Scott Benner 19:02
a progesterone period in there.

Jennifer Smith, CDE 19:05
So you're essentially when you're looking at progesterone that is typically like peaking at certain points, right? And then there's also the luteinizing hormone, there's follicle stimulating hormone and there's estrogen and a lot of hormones that are coming into play. So progesterone kind of starts to really kind of like, fall off essentially, once your period is started. It has really climbed in the time of you coming into potentially having a period and part of the reason for that is in the anticipation that you in sort of that Avi LaTorre time period, have actually conceived right. progesterone levels will stay high and continue to climb in pregnant See, when you don't have conception happen, and you start to have your period, that level falls, because there's no reason to have that elevated. I mean, again, other hormones at play here as well progesterone being one of them, but it doesn't need to remain where it was because you're not pregnant. Okay. And so then it fluxes

Scott Benner 20:21
right. And do do we let's try to think about this. Do we count the the beginning of the cycle is considered when the period starts, right?

Jennifer Smith, CDE 20:32
Day one of your period is day one of your cycle.

Scott Benner 20:36
Okay. In that moment, estrogen at that point is lower. Is that right? And then it starts to,

Jennifer Smith, CDE 20:45
and then estrogen starts decline coming into ovulation. And then in that next phase around ovulation and potential like conception, again, progesterone is sort of like climbing into that time period. Right? So, you know, again, all these fun hormones doing different things. I mean, if you even looked up a simple like just Google, a graph of like, what your hormones should look like, you can tell why. One Basal for 30 days in a row, if you're a woman who has a monthly cycle, doesn't work. Yeah.

Unknown Speaker 21:27
It doesn't,

Scott Benner 21:28
you know, what else I learned by digging into all this is that not that I wouldn't expect this because it's a physiological thing. But it's incredibly complicated what's happening. It's not just like, you know, your your eighth grade health understanding of it, which, you know, in my mind was, an egg gets released, you use it or you don't use it, if you don't use it, you know, the uterine lining and the egg come out in a period, which I know is high level what it is. But the idea of like the ramp up, right, like the gosh, like you start talking about like follicles, and like, there's this process that's happening in there, where your body's trying to locate the strongest egg to be released. It's not just like the next one on the assembly line. It's like it literally anyway, it's mind boggling. Even the TED talks on it are confusing. Even when even when nice girls sit in front of cameras in front of YouTube and try to talk to you right in your eyes, you're like, I don't understand, there's so much happening. But I think for the case of but for type one for using insulin, is it is it as easy as saying that there's a time when you're bleeding, there's a time when you're ovulating. And there's a time when your body is trying to make your body a hospitable place for sperm to live. So that the process of fertilization can happen well, is that basically like there's I mean,

Jennifer Smith, CDE 22:52
that's basically the simplified and I think, sort of along the same line of what you're getting at is, if you, if you're having a cycle, whether you're on birth control with a cycle or you're not on birth control with a cycle, you can expect the times of your period to show similarities for you in insulin need, right? One person may experience during this phase of, you know, hormone release, or this phase of their cycle, that they always have higher blood sugar's now that they've been tracking things, they can say yes, I'm always getting higher here. One of the first places that that commonly starts is the fasting blood sugar, or the overnight blood sugar. For whatever reason, in the hormone dance of the human body, that's the first place that commonly women see things are running higher. And if you start to pay attention to your calendar, it will most likely coincide with that's going to be somewhere about like, three to maybe seven days prior to your period, starting. Some women experience really short lived higher insulin needs. And whether they may have missed a slight nudge up maybe a week sooner. Most of them notice, gosh, the first you know, day and maybe the two days before my period, I'm just high I can't take enough insulin, I dump it all in and I still sit high. Well, next month, you know, if that's the case, and you start seeing higher blood sugars, and you do and you are maybe somebody who doesn't have a regular enough cycle would probably expect that this is what's probably on its way as long as your site isn't bad and you know, all the other variables that it could possibly be

Scott Benner 24:42
Yeah, so it's going to be incredibly important for you not to throw your hands up to the diabetes ferry and go it's just did diabetes. It's happening to me again, like after it happens a couple of times. You gotta say like Jenny saying, like, this is what happens. Whether or not I can tell you that it absolutely happens on day. I don't know 30 Have my cycle or not? It becomes unimportant like you, you sort of see, you know, it's not any different than like, as you're talking about all this and about when people see higher blood sugars, like Arden has this too, but because my mindset is, like more insulin push back, don't let it happen. I can't see it. Sometimes I can tell you that we're bolusing more or that I'm running a higher Basal like profile. But I'm so accustomed to just being in the fight and fighting the fight. I sometimes don't think about why it's happening. I just, I just adjust

Jennifer Smith, CDE 25:35
to get it back to target. Yeah. And I and I think that's, that's okay, as long as you're okay, adjusting that way. And if that works for you, then great. I think that more women especially again, those who are planning a potential pregnancy, are really wanting to track well enough because they're also in ensuring that their blood sugar's are really optimally managed for possible conception and that thereafter, you know, so if you really do want more consistency, rather than saying, Well, I know how to do more insulin, I do it all the time. I just, you know, adjusted here and take more, they're adjusted back here or whatever. But if you have even those that have irregular enough cycle, it could take some of the like headache out of the arm Hi again. I know I need more, I'll take more. But gosh, is this happening regularly enough that I could actually figure out how much more do I need on an average monthly change time? That is less guesswork in the moment that

Scott Benner 26:38
and the reason I brought it up is because the process of getting ready to make this episode with you made me realize I'm gonna set up three different profiles for Arden because she's gonna go to college. Yeah, know what to do her blood sugar's gonna go up and she's gonna be like, this never used to happen before. You know, and and she's, you know, not gonna realize the thing she's missing is me. Texting, texting or going yo Bolus, what are you doing? Cuz because for people who don't like really understand, I know it sounds like micromanaging to some like newer people but for people listening the podcast I don't imagine it does. Like, I don't like to see a blood sugar over 140. And I act like like, you know how some people might act when your blood sugar's 300 is about how I start feeling at 140. I'm like, yo, what are we doing here? Because in my mind, I'm targeting back to 80 in my mind, 140 60 points too high. Like, get it get it, but the the amount of insulin that it takes to get it has climbed since Arden's been on a birth control pill. So while yes, the birth control pill has regulated Arden's period, and she's not bleeding to death anymore, her diabetes has gotten more difficult. Yeah. Because and now if you go look at graphs about how insulin like listen, what I know about birth control is probably not enough. But you're getting you're getting a pretty regulated amount of these hormones every day. And and that birth control is literally tricking your body into not releasing an egg. I didn't realize that. That the bleeding

Jennifer Smith, CDE 28:16
keeping you on a one cycle of hormone akin to not needing ovulation.

Scott Benner 28:22
Yeah, right. And so you're not nothing's happening and ovulate. Like the whole process isn't happening. Actually. I think what confuses people? Is that the bleeding that happens when you're off the hormones and you're on the the placebo? CBOs is not your period. It's got it's actually got a name. It's, uh, hold on a second. I have so many browser windows open. It's called withdrawal bleeding. Yeah, yeah. It's not your it's not the same thing

Jennifer Smith, CDE 28:51
I never heard. I've never heard it called that before. Okay. Well,

Scott Benner 28:55
I was schooled, I recorded an episode about this with a different podcast. I'm gonna be on a vagina podcast pretty soon. And that's funny. Oh, it was hilarious. And as I was being asked, I was like, why is this happening to me, but um, but people who really take birth control? I don't mean seriously is the wrong word. But but see it as stuff that maybe, you know, there are people who think you shouldn't do it. There are people who think you shouldn't tell people how to live their lives. There's a lot of consternation around birth control in some circles. And it's important for those people for you to know you're not actually getting your period when you're on birth control. So and I have to be honest, I don't want Arden to be on birth control not because it's birth control, but because I don't want her to take anything she doesn't have to take right but she's she was going down. You don't I mean, like Yeah, we were looking at a real like, I guess this is it. Like you know the money with the money we save for college. We could buy a house with now or something Well, and

Jennifer Smith, CDE 29:56
that's I mean, those there are I think really there really good reasons to utilize birth control all around, there are. But in a case like this, it's almost a necessity in order to get containment of something. Now, the other thing is, you know, is this something that's just, it's just the way that her body is going to continue to work even into like adulthood, where she continued to have to have this level of birth control, you know, management, so that she doesn't have this problem. That question, you know, I

Scott Benner 30:29
had constantly like, when do we just like, stop at once and see what happens? You know what I mean? Like, right, but I don't understand any cause and effect reasons why using birth control for a while, would you know, quote, unquote, regulate things? And then you would need it anymore? Were? Or was this just a cycle of her life, and it was going to pass on its own. And we're never going to know, as long as she's on the birth control pill, right. I keep praying, I keep thinking maybe, you know, a few months before college, maybe we like, would try Bella bail on at one time and see what happens, because you've

Jennifer Smith, CDE 31:06
done enough work already to know. I mean, she's used several different types of it. So you also have an idea of what works, what really did nothing good. And what does actually work because there are so many kinds of birth control that are available, and so many mixes of hormones that you could use, or some are single, single hormone and some are a mix of hormones at different levels. They're taken different ways. I mean, there are

Scott Benner 31:39
one point are our pharmacy benefits changed or over to a generic things were going great. And then they change the generic a went right back to where it was again. Oh, and then we had to swap her back to another one.

Jennifer Smith, CDE 31:53
So funny, right? I mean, if it was the same thing, only a generic what's different, right?

Scott Benner 32:00
I have no idea. This is the this. Jenny in one way or another vaginas are the bane of my existence. Just there. They're torturing me from different angles and different perspectives all the time. And, and on Arden's period has been, I mean, a roller coaster, it has not been fun for her for the, you know, people trying to help her.

Jennifer Smith, CDE 32:24
Well, and I think you see it from a perspective of, you want the best for her, you want her to be healthy and enjoy life and everything. So you see it really as a it's problematic, not from a physiologic standpoint is problematic and what it brings into the picture of her management, you know, you may have a very different look on it. If she didn't have diabetes.

Scott Benner 32:50
Yeah. Yeah, I guess I there's so much about I wouldn't even understand or pay attention to her. Right, sir. So I, I'm basically having this conversation to tell people that I'm going to start doing what I think you should do, like I'm gonna, I'm gonna set up my own tracking app. And I'm gonna track Arden's like insulin inputs, just Jenny's making a face because I don't do

Unknown Speaker 33:13
I'm pretty yummy. Yes. Like, you don't do things like that, because I don't

Scott Benner 33:17
She's gonna leave for college and either bleed to death, or have a one see in the aids like one of the other. Like, it's just one of the others gonna happen. So And typically, I

Jennifer Smith, CDE 33:27
mean, that is, it's also another piece in the mix, too, because you brought a lot of things in that could be happening in periods that are mismanaged, right? Someone who has excessive bleeding can bring in a lot of other health risk problems that can also make the diabetes management piece even harder to figure out and manage around. So it's really important. I mean, on average, you know, quote me, but I think I read at one point, like the average woman with a normal healthy cycle length, and not excessive bleeding, really only loses about a quarter cup of blood through the whole period, which is it's a tiny amount, right? I mean, if you know what a quarter cup measuring cup looks like. So I mean, if you're saying gosh, excessive, clearly excessive is like, lots and lots that shouldn't be happening.

Scott Benner 34:22
Here's the one measuring stick for you. Arden's ferritin gets down to like the teens. She gets an infusion. They tested again, it pushes it into like the 130s. It gets pretty high when you get the infusion. Yeah, within three months of not being on the period. She was back in the teens again, teens again, yeah. So and just I mean, for people who don't know an email, low blood, low iron, whatever, you know, however you get to it. I mean, just can't hardly pick your head up. Oh, freezing feels horrible. You feel like you're dying, the whole time, shortness of breath. You can have heart palpitations. Like it's not good, you know, you get pain in your, like muscles and joints and like it's it's terrible. So Arden's gonna stay on this as long as she needs to but, but it's funny while she was home, Arden's chill at home, like when she was going to school from home, she needed less insulin. As soon as she went back to in person I knew her needs, were going to go up again. And I did the thing, where I was bolusing too much and didn't adjust settings for a little while to like, it happens to everybody, it's sure doesn't not happen to me, because it's my podcast, like, you know, like, you're so used to managing one way, and then this big piece of your life changes. And you don't even realize it for some reason. And that just made me sadder when I realized that thinking about this, because basically, on your period, your life is changing. Like every couple of weeks, you know, like there's this impact and the end, it might not happen to everybody, there are some women who will listen to this to go, oh, that doesn't happen to me. Or if this is, you know, just like, Oh, my God, well, in

Jennifer Smith, CDE 36:07
fact, I've got, you know, some women that I've worked with, you know, even outside of like preconception planning, just in terms of diabetes management. And obviously, the cycle is a piece that we talk through and talk about, and some women who actually have the higher blood sugar levels during their period. Not before. It's more really an onset while they're actually having their period, which is not the typical of what I've seen. But again, I've heard it enough that it's also not odd or rare.

Scott Benner 36:38
Yeah, no, no, in the questions that I sent to you that that I found online, it was almost like people were like, hey, during these days here, my blood sugar is incredibly easy. And then somebody would come along and say, well, in those same exact days, my blood sugar's incredibly difficult. And yeah, I'm sure if we could, you know, Doctor House, every person in the world you might find, but I don't think that's gonna love that show. I mean, right. sarcoidosis usually. Right? And I don't even know what that means. But, but so did you see anything in these questions that you definitely wanted to go over?

Jennifer Smith, CDE 37:16
I was just gonna go back to because

Scott Benner 37:21
because at some point, too, there were a number of questions about menopause to, and some women are asking about what about when they take hormone replacement? Is it going to happen, then? And I don't know. But it seems like the same as taking birth control to me, right? You're, you're adding hormones to your daily intake.

For the longest time, I believe that one of the sticking points of getting people good information about managing insulin was that it was hard to put it in one place, or to hold people's attention or for them to realize it was there so they could keep coming back. You know, there might be an article here or there or a story that would be helpful to you. But how do you condense it all into one place. And it turns out that this podcast is the perfect way to accomplish that, I would notice that even if somebody understood Temp Basal was really well, they might not have thought about pregnancy, or if they understood, you know, extended boluses, they might not have talked about how to use your Basal well, and that you were going to be lost if you didn't have all of this information in one place. But most importantly, this information needs to be easy to digest and easy to understand and listen to. Right, like you have to want to listen. And I think that we I think we've done that with this podcast. Well, now in my eighth year, with over 600 episodes, there is a ton of information inside of this podcast. It's a it's a compendium, it really is of how to manage your your insulin and live well. So I need you to look for the defining diabetes series. It might seem overly simplistic, but it takes the terms that you're going to be using every day and boils them down into easy to understand explanations. They're not long, they're fun to listen to. And you'll leave with a real understanding of what the terms mean. The podcast also has these diabetes pro tips, which I think are absolutely I think there's they're amazing, honestly, like it's not just because I made them. I see feedback from people every day about them. And I'll actually leave some at the end of the podcast for you. But listen to the diabetes protests, but you need the tools, right? You can't just you can't just look at the instructions to build a bridge not understand what a wrench is. So listen to the defining diabetes and then move on to the pro tips. Now there's also things like how we eat where people come on and talk about all the different ways they V carnivore, gluten free Bernstein FODMAP keto intermittent fasting ton of them, because I think that everyone's eating style should be represented. I don't care how you eat, I care that you know how to use insulin. That's all it matters to me. Once you know how to use insulin, you go ahead and eat any way you want. I just want you to be able to do it doesn't matter what you do. It matters that you can. That's how I feel. There are special episodes, me and Jenny Smith answering questions from the, from the audience, you know, they're called ask Scott and Jenny. In those episodes, we talk oh my god, we talked about so much how to combat the morning rise. How does carb absorption work? How to handle a high blood sugar? What is standard deviation advice for using Basal IQ, just so many different things. There's entire episodes that are just about mental health and type one diabetes, I have afterdark episodes that handle everything from heroin addiction to being a sex worker and having type one diabetes to smoking weed and everything in between stuff that other people don't talk about. But we talk about it here on the Juicebox Podcast. I also have over 10 episodes about pregnancy, an entire series just about the variables that may pop up while you're managing your insulin. You want to learn about algorithm pumping, we've got that covered to the Juicebox Podcast is much more than the diabetes Pro Tip series. I hope you take time to check it out. There's something in there for everybody. And there is a path to the A one C and the stability that you want. So whether you're looking for community or answers, check out the Juicebox Podcast, subscribe now, in an audio app, it's always free.

Jennifer Smith, CDE 41:49
And hormone replacement therapy is usually for the most part centered around like the menopause kind of time perimenopause, menopause kind of time, it's supposed to help to ease much of the hormonal transition that's creating some of the symptoms, things like the hot flashes, and the energy swings and the insomnia and the, I guess, level of irritation one woman may experience versus another. Right? So that's supposed to technically, even things out more. And it's a good question to actually ask, if you haven't, and you're considering are already taking the hormone replacement therapy, you know, asking your physician if they know anything, really about that piece in terms of what they should expect. My expectation would be that with the replacement therapy, if it's going well, then dose is well managed. Technically, you should have actually more stability, then in how you're feeling, which should also bring more stability to your glucose management,

Scott Benner 43:01
right? Well, I guess while we're in this area, what about somebody who's had a hysterectomy? Do they lose all of those, that the cycle is just gone? Right? So that is, but is all the horror or all the hormones gone to?

Jennifer Smith, CDE 43:15
So although I mean, there's a good question, because quite honestly, you could have a partial or you could have a like a total hysterectomy, right? I mean, so there are hormonal imbalances that can definitely happen with partial hysterectomy. It does, for the most part, from what I know causes less dramatic change in hormone levels than a full hysterectomy does. So in terms of that, you know, your hormones definitely shift because obviously there's nothing there to cause that trend of hormones change, right, there's a period right disappears. So, you know, overall, while there may be some initial management that needs to be done, I wouldn't expect that there would be as much I haven't worked with many women who have had hysterectomy. But I wouldn't expect that there to be as much fluctuation as they probably usually had. I mean, when the menopause obviously is kind of similar in that when that happens, obviously your ovaries stop producing enough hormones to continue the menstrual cycle. Right? So if you've had a hysterectomy, which includes removing the ovaries, you would then be essentially moved into sort of like a premature menopause kind of time. Right. So

Scott Benner 44:45
all right. Well, you know what, there's one person that asked such as a detailed question that I think yeah, the way they broke it down might be valuable for us. So her first question was, why does the body become more insulin resistant during different phases of the mess? cycle just laid out for you. And not that I think we haven't. But is the answer just simply there's more hormones at different parts?

Jennifer Smith, CDE 45:09
Right? And so that's, you know, initially when we're talking like what is the surge of the different hormones through the course of pregnancy or through the course of a menstrual cycle, right? So in terms of that rise up in insulin need, you know, there are a couple points of time for different hormones, one of them progesterone, as its kind of rising, in terms of, are you going to find out you're pregnant? Or are you now you don't know that you're pregnant, or you're not going to be pregnant, so you end up having a cycle. So then that climb in progesterone is, again, that typical time period before your cycle starts, that you would have insulin resistance creep into the picture. It may creep slowly, like seven days before you start to notice you've got that rise in blood sugar, okay, maybe you change up your overnight settings, or, you know, whatever it might be, as you get closer to your expected first day of cycle, you're going to see a lot more resistance. I mean, many women find 20 to even 40% more insulin need in that time period of climb in hormone. And then that most women experienced the most significant and resistance the day before their cycle starts

Scott Benner 46:21
the day before the cycle starts, which is the day Yes, leading to

Jennifer Smith, CDE 46:25
day before there, yes, there before their period starts. There's they're bleeding the event here, but in the event, there you go. Um, so you know, that could be, you know, a visual point of saying, Well, I'm not crazy, I didn't need to change my pump site and change to new insulin or nothing was really wrong. I see that this is the pattern and this is what's always happening. So how high did my blood sugars go? How much more insulin did it look like I continually used in the past two or even three months, so that you can expect it now. And you can make a I guess, a wiser shift in your insulin rather than just sort of like completely guessing. Right? Oh, I'm gonna take three units today because clearly two and a half yesterday did work well. Okay. But if you have some back knowledge, you can say okay, this is definitely how much more I needed. And I can adjust better here. Now,

Scott Benner 47:19
do you know there are months that Ardennes period doesn't begin on the first day of the placebo, it happens sooner. Which doesn't make any sense at all. She's definitely kooky and her belly, like like something's, something's going like when that happens. So is yet two days ago. I saw as much resistance from her as I as I had in the month. And I said to her, like something, you're going to get your period. Soon. She goes, I have like four pills left. And I was like, okay, so then yesterday, do all day. Like we had to cut her insulin back. Crazy yesterday. So when she got home from school, I was like, did you get your period? Because No, I still have a couple of days left. But her body acted like her period started yesterday starting and I'm like, I wonder if the bleedings now adjusting back to where it's supposed to be. I also wonder sometimes like Kelly's, you know, still still match traits, my wife still fertile.

Jennifer Smith, CDE 48:19
That's a good thing. The longer you actually have your cycle, the healthier for you. It reduces a lot of the risk of female related cancers. The longer you have your cycle, and the length of the cycle matters to not that this is diabetes specific, but it's a piece in the mix of bad cycle regular cycle and the longer you have it in the life the better for you. Yeah,

Scott Benner 48:43
well, that's good news. But what I was wondering was is you know how you kind of sync up the people? Yeah, like I I've often wondered if Arden and Kelly even being near each other is messing with Arden.

Jennifer Smith, CDE 48:55
Very likely because in college I had three other roommates. And at that point, we we all within a week had our periods at the same time. Yeah, like it was not a house

Scott Benner 49:14
buying a bigger trashcan. Okay, so this person's next question was, do insulin needs change? Only when premenstrual or does it happen around ovulation as well? I think yes. We've pretty much gone over that right.

Jennifer Smith, CDE 49:29
Yeah. And ovulation for some just in clarification, some women notice more significant insulin resistance around ovulation than they do in the pre cycle or like period start time, and it's often much shorter lived have a is a swing up, more noticeable rise. Post meals often tend to be impacted more if you're going to notice a change around ovulation, but it's only going to be like 24% 72 ish hours around that ovulation that you're going to notice such significant resistance. So again, we've got this like roller coaster of hormones going on. Making people feel

Scott Benner 50:14
crazy. Also, I watched a video about how to know when you're ovulating getting ready for this. And there's a lot that you can watch. Oh, geez, I learned a lot about discharge and cervix ripening and feeling sexual, and that it sometimes happens. And sometimes, to some people doesn't happen to others. Some people get many of the symptoms, some people get fewer none. You know, it, I love it when something spelled out to you like this. Here's what could happen, unless it doesn't. Or maybe it won't. But it could and you're like, This is not helpful, like, say something concrete or stop making videos. But it was really, I don't know, it was interesting. Anyway,

Jennifer Smith, CDE 50:59
here's a really good book I got actually years ago, before we even plan to start trying. It's called taking charge of your fertility. And it goes through, it's really, I think, I think that it should be given to women in general. Because even if you never plan to have children, it gives you a really good idea of how the female body works. Yeah. And it can, from just that standpoint, make you feel less like. Like, I've always kind of hated when people are like, Ah, she's getting her period. Like, that's the reason for all of these mood swings and whatever. Well. I mean, that's, quite honestly, it could be true. I mean, it's somebody meaning it in kind of like, not a very nice way. Yeah, but it is true that hormones change and flux a lot. But for you to know that as the person living with it, you don't feel silly about that. That's your body. It's supposed to be doing that.

Scott Benner 52:00
I'm 20% more feminist than I was before I started paying attention to this. And I was already on the lady side. And so I mean, listen, I've never once been given medical direction that began with start with a clean finger. But I've heard those words a lot. Now since I've been paying attention to this. And I just thought like pork girls, like you don't even like cheeses and seeing it happen to my daughter, like firsthand. It really does. I mean, if you're if you're not moved by it. I mean, I don't tease my daughter or my wife about like, Oh, your periods come in, you're acting. But I tell you when I was younger, I probably said it. But now, now that I've lived around it, I'm like, it's not. I mean, they should just say you should you should be thanking them, not telling them. Yes, sir. You know,

Unknown Speaker 52:45
I know, to some degree, and I'm very happy that I have two boys. Like, you're gonna go to your dad. This is Dan's department.

Scott Benner 52:54
You go to your father, whatever he says it's not gonna start with begin with a clean finger. I can tell you, nobody asked Bobby about that. And you you're lucky too, because you're not gonna ever be in this situation that Arden and Kelly are in where your periods are like, No, it just jerking you back and forth. On timing. Right? You know what I mean? Right, right.

Jennifer Smith, CDE 53:12
Because I have like I said, I have experienced that like in college. But I don't think at that point, I was even while I did a really good job of management as well as I could. I that technology at that point was not I mean, there was no CGM. I was still doing, you know, a lot of darn finger sticks a day to see where things were going. But I don't think I was as a two and two even wanting to pay attention to why something I was just like, Oh, I didn't even at that point. I was like, oh, it looks like I just need a little bit more. I

Scott Benner 53:48
mean, maybe we're a decade into having the technology where you can break this stuff down. Versus next question. I really want to thank them for this and I don't have her name here, I apologize. Is you know, she brings up what are ways to track it. Um, you can track it on a paper calendar, you can track it in an app. It's my intention to just like I said earlier, to in a quick, easy way, maybe even colors would work. Honestly, you know, green, yellow red for insulin. I would track insulin needs I would track when the period starting I would try to figure out as much about ovulation as I could. So you can kind of find that window in there about where it is. And I'll tell you to like it sucks but you could track your mood. You could track your you know, your sexual desire, like you can make all those little like clicks there. It's like yeah, you don't I found thinking sucked for women the whole time, is that things that from an outsider's perspective seem like choice can be driven so harshly by hormones, which could make you feel like you're not doing things purposefully like it's your body. Doing it

Jennifer Smith, CDE 55:00
telling you to do you telling you to do

Scott Benner 55:03
Yeah. Like, like, I would hate the idea of, I'm on a date, and I'm open to having sex tonight. Not because I want to have sex or because I like this person, but because my hormones are in a state where it's telling me

Jennifer Smith, CDE 55:17
they're kind of telling you to feel this way. Yeah,

Scott Benner 55:20
do this now. Because sperm will live in you for five days, and then we can get you fertilized and give you a good chance to, you know, bring in this egg along. That's, I mean, it's kind of which brings

Jennifer Smith, CDE 55:33
in a lot of interesting fact, especially for the teenage. Right? Yeah, where I mean, the majority of teenagers, this point are not considering conception. They're not they're beyond that, you know, for many reasons, but those are some of the things that your body is supposed to be telling you to do. And, you know, what's the reason? Well, eons ago, people were getting married when they were 1415 years ago, old and having kids at that point, in fact, you know, if you weren't married by the time you were like, 25 was like, over four

Scott Benner 56:15
are window. Yeah, right. We're five years away from dying, probably it's. Well, I mean, I listen, it's beautiful, like, you know, in a nature kind of naturalistic way. Like, it's amazing. I just found myself feeling badly that you could be having feelings or thoughts that aren't the ones that you decided to have. But then I kind of brought it out larger. And I thought, when my iron was lower, I wasn't who I was. Right? I mean, we're all just, you know, some dialed up level of different chemicals and hormones and impacts and everything. And, and I yeah, I think that I hate to say that I think this episode could have been like, Hey, you should track your period, and then make better decisions about your insulin. Like, I really think that could have been the end of it. And it Well, I

Jennifer Smith, CDE 57:03
think there's other I checked, there were a couple other questions in here that I think that do go. I mean, they they kind of go into, yes, that's the base, track your insulin, see what you need, and then make the decision on how to make your insulin delivery system. Do what you want it to do for you, right, but there were a couple of questions. One of them was on MDI changed my Basal in a certain point of my cycle to deal with increased or decreased physician resistance. And I should I also focus on adjusting my boluses I can say that, absolutely, you'll need to adjust at least your Basal insulin, even on MDI. I mean, when I was MDI, and had caught on to the fact of needing more, based on what my blood sugar was doing, I knew that I needed a certain dose, that was three units, I still remember it was three units higher than my baseline dose for the time period of resistance that I needed. So you know, in terms of that, I could always adjust and unless something shifted and changed, you know, I would have maybe used a little bit more, or a little bit less. But overall, it was, it's funny that I still remember, three units, four was always what I used when I had my period. So yes, you could use more. And if your doctor isn't directing you to do that. Our doctors don't direct us to do many things that we end up doing. This is not advice or recommendation to do that, but discuss it with them. But it definitely and bring in maybe some of the logs that you've kept and say, Hey, I'm noticing this, would you agree? I'm thinking I need this much more insulin, right? I mean, always check with somebody, obviously, if you feel that you need to Bolus is could they need to adjust? Absolutely, they could.

Scott Benner 58:58
Well, you know, I just did the math real quick three units is only like point 125 an hour if you're on a on a Basal program for a pump, so right, but but, but it might have been significant for you. Do you remember what your Basal was back then?

Jennifer Smith, CDE 59:14
Yeah, I do my Basal and overall was sitting at 12. And I needed 15.

Scott Benner 59:22
Okay, yes. Okay. So it's a big jump, even though it doesn't look like a big jump per hour. It is a big jump percentage wise,

Jennifer Smith, CDE 59:29
it was a big jump percentage wise and it was a bit I mean, it looks like a big jump like Gosh, going from 12 all the way up to 15. Oh my gosh, like, that's a lot more insulin right, especially when you talk about like adjusting things. Okay, we're going to add one unit more of your Basal insulin and we'll see how this manages things over the course of that whole 24 hour time period. Right. Um, I the other one that I thought was good to focus on would be using algorithm driven pumping systems as a female, the algorithm was not it wasn't built for this to deal with hormones. It was not it wasn't built for hormones, it wasn't built for pregnancy, you can successfully use it. If you know how to manipulate settings, right? I, I personally find that it's better for me to just adjust my baseline profile in my system. And then on the months that I am more resistant on top of that, then a temporary adjustment up using a temporary Basal or an override or, you know, whatever your adjustment is for the algorithm that you're using. I adjust up using that. Yeah.

Scott Benner 1:00:48
Is this whole conversation really similar to what you would have if you were talking about like, a teenage boy who's going through a lot of growth and hormone changes and stuff like that, like just it's just not on a cycle that you can see as well? Right?

Jennifer Smith, CDE 1:01:05
It's not on a cycle. That's as I mean, it doesn't seem to be from the team guys that I've worked with, it doesn't seem to be as cyclic.

Scott Benner 1:01:13
Yeah, predictable, right? It Right, right. This really is predictable, though, within reason,

Jennifer Smith, CDE 1:01:19
within reason, yes. And I can even say, if you're the person with the irregular cycle, let's say 25 days, one month, 29 days, another month, back to 30 days, and then back down to 25 days. Despite that, the things that you're seeing happen to your blood sugar, in that time period, will continue to happen for you. Yeah. Right. So even if your cycle length isn't about the same, if you start to see those in a time period, that could be soon enough to be close enough to like an early cycle. Or maybe you're gone back beyond that. You haven't seen changes yet. And up now I see changes.

Scott Benner 1:02:03
Okay, right. Yeah. Well, I was just thinking that you're talking about like variables and inside of variables inside of variables. You can, you know, you know, food, food cravings are not uncommon, right around hormone changes. So you could you could have forever thought, why is it sometimes I'm really good at nachos. And other times, I'm not really good at nachos. And maybe it's because once in a while you have nachos when you want them? And sometimes you want nachos? Because your hormones want them. And you're already in a situation that's more difficult. And then you add in food, because what was the question here is like, should I eat differently or exercise differently through different phases of my cycle? Which is a great question. And it may be think, you know, I'm not into telling people how to eat. But there are definitely foods that are easier on you that take less insulin that you might want to try eating, while you're having an increased need for another reason, because now otherwise, you have to increase needs correct difficult food and your hormones at the same time.

Jennifer Smith, CDE 1:03:05
Right? And the hormones are driving a desire for things that otherwise you may have very, you may have very easy management around, right. You may love nachos, but your typical serving of nachos is appropriate and and find. And if it's a hormone driven time, you know, you might eat much more

Scott Benner 1:03:24
of your doctor. You know, while we were adjusting Arden's birth control pills and getting it right, she couldn't stomach meat. Hmm, she was not a vegetarian kind of person. And for a while she couldn't stomach meat, like just getting away from me. She couldn't smell it, she definitely couldn't even think about eating it. And then as her as the pill, we found the right pill. And it got kind of like set in stone. Now that's come back a little bit.

Jennifer Smith, CDE 1:03:51
It must be something to do with the hormone levels in the birth control she's using because it's actually not uncommon for just thinking about hormones in general. Many women have some aversion to meet during pregnancy. Yeah, many women can't stomach red meat specifically. So I wonder if it's something hormonally? Well, similar. That was weird happening for her before it got regulated.

Scott Benner 1:04:18
I'm running around the house pointing to that my wife's like, that's crazy. Arden's like you don't think Arden just thinks I paid too much attention to her. So she's like, stop paying, like caring I brought up to the OB the OB is like, I don't know, I'm like, god dammit, I'm right about this. Like, no one's watching these people more than me. You know what I mean? Like, um, they trust me they don't be dead without me, Jenny. Like, in one way or another? My wife like, you know, like with the thyroid stuff like I'm the one who's kind of like stepped back like you guys hear me talk about on the podcast like being micro and macro. Like on my family on macro. Like I step back, I look for big picture stuff. And I don't worry, but when I start seeing stuff over and over again, I don't know. It's just who I am the guy just don't know, I worry about people. So

Jennifer Smith, CDE 1:05:03
that's not a bad thing necessarily bad

Scott Benner 1:05:05
for me. It's great for them. You've ever noticed me worrying about myself? But

Jennifer Smith, CDE 1:05:12
was this I think this kind of me answers some of the question I see and hear about age. Do How old was Arden when she had her first cycle? Do you remember? Of course you remember?

Scott Benner 1:05:23
No, I don't know if I do. It was a little later than her friends. Okay, maybe,

Jennifer Smith, CDE 1:05:31
as was, as was I? And a couple of questions here, you know, just relative to, like, when should I expect this in my daughter? Honestly, could be as early as age 10. Wow. Honest. And it could be I mean, I was, I was definitely late. I was definitely late and getting my cycle comparative to all of my friends. But I also think, in terms of that, my, my management wasn't then what it could have been if I were diagnosed in today's age, right. So I think that the management style that I had at that point was not managing well enough to allow my body to actually be consistent enough to start my cycle at the time that it technically should have started. Yeah,

Scott Benner 1:06:24
this is Jenny's third attempt to let you all know to go back and listen to all of the pro tip episodes. You can do a really great job of getting your settings right understanding how to make changes for yourself, how to Bolus for meals, how to keep high blood sugars from happening, like she is very artfully telling you, that's the ability and understanding is the is the firm foundation of living with diabetes. She says she's so nice about it when she says I'll just say what Jenny's saying y'all aren't doing a good enough job. You got to get in there and try a little harder. You know, it's funny, I think Artem was 14 Having just turned 15. And I don't remember the date. I remember the situation we we, along with a number of her friends. Were on our way to go swimming. And this was Arden's first time swimming with a period. And a bunch of little girls disappeared upstairs in my house, and came back 20 minutes later, disheveled, sweaty, rocked, and the end, the one girl goes, we couldn't get it in. And apparently, this is apparently at one point like a mechanic

Unknown Speaker 1:07:34
and how funny that they actually like. I mean, well enough with you that they actually announced it to like a guy. Oh, my God, I would have been like mortified, telling my dad something Oh,

Scott Benner 1:07:45
no, no, no, he was described to me as Arden was a car on a lift, and the girls took turns trying to change your oil and couldn't figure out how to do it. So.

Jennifer Smith, CDE 1:07:56
Oh, that's interesting.

Scott Benner 1:07:58
So that's about what happens around here usually. And well. Actually, I gotta say that's not usual. But but it didn't work out. And so I'm thinking it was the end of her 14 right around her 15th birthday. If I'm okay, I'm guessing right? If I'm wrong about that, then it's end. It's not 1516 She's been at this for a while. I think it's 14 to 15. But yeah, like this could you could have kids getting their periods, all kinds of crazy ages. Like what what they used to hear like the hormones and cow's milk or making girls develop sooner or something like I don't know if any of that's true. But you know, there are girls walking around sometimes where you're like, are they 20 or 10? Or like what he can't tell? Yeah,

Jennifer Smith, CDE 1:08:36
I know. Yeah. The I mean, I think that that's like a rabbit hole of we could dive in there. But it would be a long, long discussion.

Scott Benner 1:08:45
We should make euphemisms about holes while we're talking about periods. So. So I mean, do you think, let's see, do you think there's anything else like I mean, I feel like this is a good conversation, I mean, perimenopause, people are asking about different kinds of birth controls, like there are non hormonal birth control, like, ways, right. So, I mean, there's, I'll tell you, more than two people asked about Plan B. Whether as an whether or not that would have an impact on blood sugar's and I wasn't able to find that out.

Jennifer Smith, CDE 1:09:21
You know, I that is a really good one. I can actually ask my, my or my, my MFM. I can actually ask them if they have any reference to that having worked with enough women with type one. I don't know. I mean, the goal of that, obviously, is to not conceive. So it has some level of hormone shift to prevent pregnancy.

Scott Benner 1:09:49
You would think it's an overwhelming of hormones to kind of stop

Jennifer Smith, CDE 1:09:53
whether it has an impact on blood sugar. I don't know that's it's a really good question.

Scott Benner 1:09:59
I don't know enough about how that works. works? How about IUDs? Do they impact blood sugar's that I'm sure you've seen in practice, right?

Jennifer Smith, CDE 1:10:06
Right, those more they seem smoother than other birth control methods from what I have seen. So do they have impact? They probably have an impact in terms of initially having one. And then the outcome of what now your sort of monthly cycle if there is still one remaining, what does that look like? Do you see any shifts? I've, I've seen women who don't actually have any visible cycle whatsoever, right? Who have noticed a minor shift that appears to be cyclic, but most of them tell me that they don't even adjust around it. They just end up taking like a little more corrective at the next mealtime the correction seems to work well enough, kind of gets them, you know, back to where they want to be. And they never make any shifts in their insulin at all.

Scott Benner 1:11:03
I have to say that Ardens OB was pushing, pushing, she was pushing, she was saying if we don't find some stability with blood with birth control pills, she wanted Arden to consider an IUD now Arden's like a little young, like we walked out, she's like, the first thing she said to me is like, I'm not doing that. And I was like, gotcha. But it was, you know, she's like, you know, in the future, we might have to keep this in mind. Yeah, I don't I you know, that is another thing I don't know much about. But you look like you have something you want to say. What did you find?

Jennifer Smith, CDE 1:11:32
No, I was actually just looking up a little bit about whether I could find anything on the plan B and blood sugar specific to type one, but I don't really see anything at all that documents that

Scott Benner 1:11:48
Okay, how about so is PCOS somehow related to diabetes? And or no? Like, why is it just because I only apparently at this point in my life, I only talk to people who have diabetes that I I start thinking things are more common or

Jennifer Smith, CDE 1:12:03
right PCOS is more common in those with other metabolic shifts that include insulin resistance and PCOS can bring more resistance into the picture, right? Other metabolic things being have more difficulty with weight management, they have higher cholesterol levels may already have higher blood pressure, despite potentially doing all of the healthy lifestyle things to manage those. But PCOS is more common with the type two. But interesting. In the past, I would say five years, I have had more women more normal, like healthy body weight and healthy lifestyle who have actually been diagnosed with PCOS. And part of the part of the reasoning in terms of like sending them to their back to their doctor to say, hey, I don't understand I am doing everything in the picture of management. And I need so much insulin to keep things where they are. Something else has to be in the picture. So a mine is always Why don't we look for PCOS, because if that is in the picture, one of the long term even in women without diabetes with PCOS is a medication that's very common and uses Metformin. Okay, it helps to dial down the resistance and from the PCOS level, it helps with some of that cystic nature in the ovaries and it helps with evening some of that out in terms of hormones and everything. So Metformin is definitely a heavily used additional medication that could be you know, beneficial.

Scott Benner 1:14:02
Yeah, somebody mentioned Metformin in in one of those I forget where it was. I didn't bring that question over for some reason, because they were like, because they were talking about like, can I could I just use Metformin during certain times of resistance around my you can't stop and start it right?

Jennifer Smith, CDE 1:14:22
That's no that's not the way that Metformin is meant you know, if you're going to use it, we started a low dose, evaluate tolerance I mean, it's one of the older oral medications it typically for most people is well tolerated after you get over some initial like first week or so of like some stomach upset and as long as you're tolerating it, it increases to like more of a therapeutic level. And then you continue use of it you

Scott Benner 1:14:48
don't stop at use Advil during one section of your Yeah, I only got I brought it up here because if somebody was thinking maybe somebody else was thinking, I did not think that was a good idea. So okay, I don't know, like, there's this moment where I go, Are we good Johnny that I do we do it or?

Jennifer Smith, CDE 1:15:08
Yeah, I think, you know, I was looking at more of the questions just to make sure that P A mean in terms of talking specific like cycle, I think yes. Um, I mean, I think discussion around things like menopause and that kind of stuff are it's such a transitory time in terms of

Scott Benner 1:15:37
that ever, right? Like menopause can go on for years.

Jennifer Smith, CDE 1:15:41
It can go on from very long time. Absolutely. I mean, and that's really perimenopause. Right. Once you're fully in menopause, you have no longer had a cycle for a year's time. Right, then are you are menopausal. perimenopause starts with many women notice a shift in their cycle. Let's say you have had a regular 30 day cycle consistently, you kind of getting into the age of and what age in general about 50 ish, but women with diabetes have from research sort of proven to start earlier than the typical like age of 50, let's say. So any shifts in your cycle, without any lifestyle changes or anything like that, you know, now you're having 25 day, the next month, it's 30. Day, this month, you have three days and a really light cycle next month. It's really, really heavy and painful. And it's just not your typical, it could be very likely that perimenopause is kind of in the picture and there aren't any many women would say, Well, can I you know, get hormone testing levels done to see in this point of perimenopause, it's not typically recommended. It really isn't until menopause, that they would recommend doing testing of hormones to actually sort of prove the case that they have come to a level without a cycle, you're no longer ovulating. And some women actually haven't done the testing to make sure that they're actually not ovulating. From just like a sexual standpoint, they're just ensuring that they can't get pregnant any longer.

Scott Benner 1:17:19
Yeah. Oh, god help you imagine having a baby when you're 50. I'd be so tired.

Jennifer Smith, CDE 1:17:24
I personally i can't i

Scott Benner 1:17:27
i would be so tired. That's all I can think of.

Jennifer Smith, CDE 1:17:31
Yes, I mean, from an age No, I can't.

Scott Benner 1:17:35
So no, my God. Last night, Kelly was like, can you imagine if we had had three kids? And one of them was just a couple years younger than Arden. Wouldn't that be nice? And I was like, No, I don't think so. It's it's 930 and I want to go to bed. How would that be a good thing? That child would end up being feral? I'd be like, just try not to die. And I don't know if I'd have the energy to take care of it. I really don't. I don't know. I mean, good for you. If you do. I don't think I could. That it. We're

Jennifer Smith, CDE 1:18:01
good. I think that's it. We should be good.

Scott Benner 1:18:04
Alright, so thanks. On the whole that's everything. I'm

Jennifer Smith, CDE 1:18:09
probably not everything but you know, it's

Scott Benner 1:18:12
alright, cool. Awesome, Jenny. I really appreciate this. Thank you so much. Thank you. Yeah, you're very welcome. My friend Jenny Smith has had type one diabetes for over 33 years. Jenny holds a bachelor's degree in Human Nutrition and biology from the University of Wisconsin. She is a registered and licensed dietitian and certified diabetes educator and certified trainer on most makes and models of insulin pumps and continuous glucose monitoring systems. She is also all over this podcast so if you like her check out the finding diabetes es has gotten Jenny the rest of the Pro Tips and so much more. Jenny does this for a living by the way you can hire her at Integrated diabetes calm Okay, I promise you euphemisms for periods so let's do it

Okay, some of these are going to be in delicate so stop listening now if you don't want to hear them. Alright, what do we got here? Strawberry week. Red and Red Army. Red wave. Red Ant is visiting men's which is short for menstruation. Riding the red wave code red. The red plague Aunt Rose is visiting red Castle entering the Red Sea tomato juice ketchup week. Ketchup week. That's not good. I don't I don't like that one. That makes me upset. What else we got here? Oh my god, that one's horrible. This is from in French. Fare do boo dime. I mean I don't think Big French but cooking black pudding. The hell's wrong with you people? The small little elves Niagara Falls. I have my things. The marquee red see? I feel sick red light red balloon. I have a flood lady days that time of the month, painters in the stairway what else we have here? special situation. These are Chinese special situation. Apple bread. Bloody Mary. That thing that comes in Japanese a Girl's Day. Blood festival once a month. Arrival of Matthew Perry. I do not understand that one at all. The Spanish say indisposed girl stuff. The frosting the steak. The frosting the steak. That's terrible. Little Red Riding Hood. Your devils the red cousin the vampire. I'm not even gonna say that one. What do you think of that? There's one I won't say that one's that one's terrible red tide. I prefer lady time. That's my favorite one. I'm also a fan of my baby box is trying to kill me. Here is another list. I painting the garage door. Moon time cranberry woman the Curse Girl flu. Girl flu is funny. Checking into the red roof in lady business Bloody Mary. Oh, i Ooh. I'll say it. Ready? Hold on. 123 the blob on the rag. I find that to be vile Crimson Tide. It's nice. I like that movie. Alright, I mean, listen, there's more than one of these obviously, you probably have a favorite. I just told you my favorites are girl time. My baby box is trying to kill me. And I did find girl flu very, very entertaining for some reason. Okay, if you're still listening, I really appreciate it. Thanks so much. I'll be back soon with another episode of The Juicebox Podcast. Make sure you check out those pro tips from the beginning. Listen through it'll be well worth your time.


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#608 Diabetes Pro Tip: Honeymoon

Scott Benner

Scott and Jenny Smith, CDE share insights on type 1 diabetes care

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 608 of the Juicebox Podcast.

Today I bring you the 25th installment of the diabetes Pro Tip series. On this episode Jenny Smith and I will discuss honeymooning. I know that a honeymoon can be very difficult to navigate both during it. And as it ends. It's difficult for parents of children with type one as well as newly diagnosed adults. So today, Jenny and I are going to do a deep dive on it. I think it's going to help you. Please remember, while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan are becoming bold with insulin. If you're looking for the rest of the Pro Tip series, it's available diabetes pro tip.com, juicebox podcast.com, where you can go right into your podcast app right now. Hit search and look for diabetes pro tip Juicebox Podcast, they should all pop right up. But there's great lists on the website.

If you're looking for community around type one diabetes, or diabetes in general, you should really check out the Facebook page for the Juicebox Podcast. It's called Juicebox Podcast, type one diabetes. All you have to do is search for it in your Facebook app, answer a couple of membership questions. And the next thing you know you'll be in there with like 20,000 people living with type one and type two diabetes. You can ask questions, make friends, use this space, any way that's best suited for you just lurk if you want. There's a lot to learn just by looking Juicebox Podcast, type one diabetes on Facebook. I know. I know what you're thinking Facebook, people are going to argue and complain it's going to be horrible. But this group really is special. There's not a lot of that going on in there. And I think you'll like it. Just give it a shot Juicebox Podcast, type one diabetes. Last thing before we get started. If you have type one diabetes, or you're the caregiver of someone who has type one diabetes, and you're a US resident, in less than 10 minutes, you can take a survey that will help people living with type one. It's AT T one D exchange.org. Forward slash juicebox. I've taken the survey myself, it really does just take a few minutes you can do it from your phone or your laptop or wherever is 100% HIPAA compliant and absolutely anonymous. It really does help people living with type one, give it a look. T one D exchange.org. Forward slash juicebox. Okay, so we're recording, I want to tell you that this lovely woman named Isabel has been helping me with the Facebook pitch. And she came to me recently and said, You need a pro tip for female hormones and you need a pro tip for the end of a honeymoon. She said these are things that people ask about constantly. And they must not feel like they're getting what they need out of the podcast on this. Now Jenny, you know, in my heart, the end of the honeymoon just means use more insulin. And when you get your period it means use more insulin but darn it, let's let's just dig into it and find out that the details Okay.

Jennifer Smith, CDE 3:47
Sure. Yes, they're both good. Good topics. Yeah,

Scott Benner 3:50
the details are apparently what is needed, and I am happy to deliver what is needed. And by that, I mean dig it out of your head and record it so people can hear it. Sure. Okay. Because my only experience with honeymooning that my only experience that I'm aware of personally with honeymooning because Arden had diabetes, you know, was diagnosed so long ago, and we had a little meter and some needles. I mean, I didn't really know what was happening in her. So the one thing that I can tell you is that I called my friend who was my children's pediatrician one day, and I I told you this before, but it fits in this this episode. So let's put it here. And I told him I preface my conversation by saying I know what I'm about to say is ridiculous. But is there any chance Arden doesn't have diabetes? And he said and he sounded sad. I think sad that I asked him and he's and he said why? And I said, Well, she hasn't needed insulin for about a day and a half now. Right? And that lasted maybe? I don't know. 72 hours. And then it was just going. Yeah, anyway, that's my entire personal experience with honeymooning but I know how difficult it can be for everybody. So,

Jennifer Smith, CDE 5:10
well, another good question. And that I mean, as you sort of began with, I just give more insulin right? Well, a good piece of honeymoon is or coming out of honeymoon, right? You're, you've kind of moved through that lack of insulin need or really, really, some people can get by on just Basal insulin. They might not need anything for their meals or their blood sugar's don't go high enough to correct or anything right. But did you notice also that after that, like, three ish days, that her insulin needs were higher than they were before that?

Scott Benner 5:48
Well, here's the here's the honest answer. I don't know. I didn't know. You don't remember. No, no, forget that. I don't remember. I didn't know what I was doing. Right. So like, I think that feeling maybe encapsulates more honeymooning and the and the leaving of honeymooning for people more than anything like, right. So somebody you or your child gets type one. It's a whirlwind. It's you know, and if you're honeymooning, insulin needs are changing kind of radically sometimes. So just when you maybe get the nerve to, I don't know, Bolus two units of a Basal, you know, and then the next day Your fight is 60, blood sugar all day that won't go up. And then the next day, you think, well, maybe I shouldn't use the two units of Basal and then you don't and then your body doesn't help that day and your blood sugar's 300. All day. That uncertainty, I think, is the main characteristic of honeymooning, don't you

Jennifer Smith, CDE 6:42
true and honeymoon is it is really different person to person, as well as the like, movement out of honeymooning is different person to person, like you didn't have art and didn't have a very long honeymoon at all. And that's not uncommon from the studies that have been done. It's not uncommon with kids under the age of five who are diagnosed, to have a much more rapid rapid onset of type one very quick, very aggressive, really high blood sugars, you know, unless they've been watching for it, or they know because of previous antibody testing that it could be coming, you know, DKA, all of those kinds of things. And what that results in is causing enough of the betas to be stressed enough and the body kind of decreasing them enough in, you know, in amount that now diabetes presents itself, okay? So but in older kids, and especially in adults, there is often a slower progression of type one, like, you know, here it is, yeah, and all those symptoms, and that often leaves more betas in the picture. Also, what's been found is that the sooner you get containment of blood sugars after diagnosis, you give some relief to those beta cells. And because now, you know, you're either injecting or you're pumping insulin. And so that's something that's helping to take care of the blood sugar levels. And your betas that do remain can actually help out and so honeymoon then often comes in, you know, where, usually somewhere between about one to four months post diagnosis is the typical like, honeymoon, time to expect that to come into the picture and how long it can last again as person to person, it could be a couple months, it could be three days, it could be a year or two that you continue to have this like lack of more typical insulin need.

Scott Benner 8:54
It's the consistency that you're that you're missing and, and yeah, that breaks people's hearts I think I'll tell you after interviewing so many people, I've heard, I believe every variation of time and distance about honeymooning from adults and children and crazy stories where blood sugars are suddenly super normal super out of whack. One lady I'll never forget told me like she thinks her honeymoon lasted years. And then I'm wondering like, is that? Is that honeymoon? Or is it a slow onset? Like is that like, and I guess it doesn't really matter, right? Like, what matters is that you're using insulin now. And in there's going to be this variability to how much until things I guess you could just say settle but obviously it's not settle. It's until your beta cells give up. Right right completely. Do do some people just not see a honeymoon at all. What does that mean? And they're not aware of it. In talking

Jennifer Smith, CDE 9:53
with so many people that I have, and you know, it's always something I asked about his diagnosis. If somebody wants to talk about it, you know, or if it's been very, very soon after I get to talk or, you know, before I get to talk to them, it's been very close to that time period. And it seems like, again, everybody is a little bit different. A little people again, very little people tend to be the ones that I hear the most, we didn't notice very much honeymoon, or, you know, parents are concerned, because they're like, I don't know, I feel like we never had a honeymoon, I feel like, we never needed just like a little bit of insulin, we just went from not using any really using insulin, you know.

Scott Benner 10:37
So functionally, how do people deal with it? So when, you know, let's say, I came to you and I said, Hey, here's my seven year old kid, yesterday, this Basal, and this meal ratio worked perfectly. Today, it's a hot mess. And I'm saving low blood sugars all over the place. I don't know what's gonna happen tomorrow. But as I look back, this is bouncing around. It's two days of this one day of that. But how do you find reasonable stability until things get normalized?

Jennifer Smith, CDE 11:12
Well, some of it again, in that early time period is it's a bit of estimation, you can base it on Well, yesterday was a really sensitive day, if it looks like we fought low blood sugars all night. And we're entering morning time again, today, with lower blood sugar's yet again, that's a good visual that maybe today needs to be covered similar to yesterday, or even less aggressively than yesterday, right. So some high insight can help. But then, you know, tomorrow morning, you wake up high. If you didn't do anything strange overnight, and you're all of a sudden, high, today might be one of those days that you're going to need more insulin. And so it, it's hard because it takes out of the picture, a lot of the things that we've done. In other we've discussed in other episodes, like testing, right, and doing things like Basal testing, in this time period, it's kind of hard, because you don't really know exactly day to day, how things are going to move overall, the general idea that kids before puberty, once remission, has kind of gone away, right? Once that honeymoon period, you're expecting it's over. Insulin needs usually are about point seven to one unit per kilogram per day of insulin.

Scott Benner 12:34
Say it again,

Jennifer Smith, CDE 12:36
point seven to one unit per kilogram per day of insulin. So and if you don't know, pound two kilogram conversion, just take your pound weight and divide it by 2.2. And you'll have your weight in kilograms. But that's a it's a, it's a baseline, you know, if you were really, really, really low to begin with, and now you're doing a really low carb diet as well. You may not really see that insulin dosing kind of go along with what we would expect in terms of overall insulin need, right? Usually, people are considered in remission, if they're at, you know, point five or less point five units per kilogram per day or less of insulin. And then, you know, once you get to puberty, gosh, I mean, you could use anywhere between a unit to two units of insulin a day during puberty, and that's completely normal. Absolutely, and completely normal. So if you're not so sensitive anymore, you definitely see these swings in blood sugar, you know, especially in that growth period overnight or in the aftermath of meals and is lasting and lasting and lasting. guarantee you're probably not in honeymoon anymore.

Scott Benner 13:50
Well, you know, you I've said it to you have said to everybody listening, you have to meet the need. And I don't know, it's clear enough about that. But if one day the need is greater than meet the greater need and if one day the the need is lesser than meet the lesser need and, and flexibilities just it's completely key. It's what you're saying. It's like you have to sort of I don't think that I don't think that during honeymoon you want to look real macro. Not all the time, right? You want to kind of just deal with diabetes and segments of it of half days or hours or something like that. Like here's what's happening right now. If it starts trending one way, then adjust with it if it starts trending the other way then adjust with it. But I don't think there's a lot of value unless you're matching an apples to apples day and going well last Thursday. You know she was really low so I don't want to be aggressive six days later. You don't I mean like today's got no no Yeah, yeah, there's no correlation between now six days ago when you're in this honeymoon fluctuation. And I know that people We're gonna think I'm flipping but I think you could just retitle this episode, diabetes pro tip ministration. And I don't know that we're gonna say too many different things when we get to it, which is why maybe for some people, they gloss over it when we talk about these basic ideas of like, it's not always going to be the same all the time, you can't always ask for a cut and dry answer. I mean, if you want to get through a honeymoon period, and it's, it's particularly, you know, Rocky, I think that just staying flexible, meeting the need, you know, taking a little bit of historical knowledge off of days that were similar to the one you're experiencing now. I think that's really the whole thing.

Jennifer Smith, CDE 15:45
I think that's the best that you can do oftentimes, especially in honeymoon, and then even, you know, coming out of honeymoon, there's, I know, some people use the word like it becomes more stable. Okay. Sure. More stable in the fact that you're not like giving only one unit and that whole talk takes care of your whole day. Yeah, yes, absolutely.

Scott Benner 16:12
But yeah, or that one day, the units necessary. And then the next day, it's not necessary. But there's,

Jennifer Smith, CDE 16:19
I think there's more consistency is, is it exactly and I mean, in honeymoon, again, there are ups their downs, yes, you can, you can choose to use insulin from some hindsight from, again, I know, on a really, really busy day like this, my child needs a lot less insulin, but is running high today. Okay. Again, it's the then meet the need in terms of where the blood sugar is right now. And thankfully, these days, I mean, you didn't have an I certainly didn't, as a kid have any visible to where my blood sugar was going at all. It was a one number, it could be rising in 10 minutes, it could be dropping in 10 minutes. And that's what

Scott Benner 17:03
it was. I wonder sometimes when I'm like, I'm speaking to this person, now, who's got a very small child who I think still their needs are, well, they're not honeymooning, they were just, they had too much Basal going. So it's, you know, by using too much Basal, they were getting drops, that didn't seem to make sense, right. And so it took a day or two to figure out that the Basal was too high, to bring it down a little bit. But in there, while we were trying to figure it out, this person was using pens. And so they were relegated to point five units at a time, right, and I just said you have syringes, and she did was like, just eyeball less than a half. Next time we go for this meal, and did that and fixed a lot of their problems. So while this kind of unseen force, obviously, I'm talking about Basal that we needed to fix though, but you know, let the unseen force be, you know, your pancreas working all of a sudden, was dropping or down? If the limiting factor was the was the measurement on this on the pen. And then you like, for some reason, your brain doesn't jump over that and go, Well, this might be too much. But your brain says this is all I'm able to do. Do you know, I mean, like, and so but the minute we dropped down to like these quarter of units, then suddenly, there was far fewer spikes in the meals, and then far fewer lows afterwards. And I'm just wondering, like, during the honeymoon period? If you are that scared of these crazy drops? Do you maybe just draw back your Basal a little bit? And then on days when that Basal is not enough, just increase your meal insulin a little? Or do you mean like, because also these these poor people are probably MDI in this moment?

Jennifer Smith, CDE 18:55
Correct. Most often, and like you said, unless they have, you know, half half unit dosed or marked syringes in which yes, if you've got to, to get good eyes, or you have a good magnifying glass, you can get kind of a quarter unit fish in there, whatever it might be. They've got a good friend that does just that, and she's done it for a long time, and it works great for her. But again, you have to kind of use those microscopic doses and on pens, it's a hard thing to definitely do because all you can get is a half a unit. I mean, I think on pumps, honestly in honeymoon and I know a lot of clinics often don't encourage people to start pumping until honeymoon is expected to be almost over. And I sometimes I agree with that. Sometimes I don't agree with that. I think it kind of is individual in need. You have to look at what people are able to do and kind of a knowledge base of where are you already but those doses they do, they do shift and change through honeymoon. And then, you know, going out of honeymoon, you can expect the doses to definitely increase your child, your TN, your, you know, adult that you're living with or your partner to or whatever you're going to expect that their doses are going to increase. And while kids are growing at the same time as coming out of honeymoon, there are a lot of factors there. Another piece in the mix that often shifts things to higher insulin, and we've talked about it before we talked about illness and management is that if a child is also sick, within honeymooning and is now requiring more insulin, then by the end of the illness, they may actually either leave honeymoon sooner, or they may just be still at a higher insulin need as during the illness, the pancreatic beta cells were trying to assist, and there aren't very many of them left. So they were getting stressed out and can all can leave less than Yeah. So

Scott Benner 21:07
that's interesting. Yeah, I think that. So I think that the next step here, I mean, besides telling people like, look, it's gonna happen, you know, if it's happening, it's flexibility is key, it's going to be a little more stressful, but only if you I guess, only if you're looking macro when you should be looking micro. And then vice versa. Like you just talked about a lot, a number of ideas where you do want to pull back and see the big picture, but not about the fluctuations day to day those you kind of got to get on like a bowl and ride them, you can't step back and have an existential conversation about whether or not you should be bull riding, you know, so. But but the other stuff, are there illnesses, is there growth, you know, activity, those things are, those are big picture items. So now, okay, so now you've figured out a way to ride through this honeymoon, the thing that I see from people over and over again, is that when it ends, you know, like when the honeymoons over, they can't believe it. They can't pull the trigger. They can't ramp up. Think about it any way you want to. But they get stuck in the game, and don't recognize that the game changed.

Jennifer Smith, CDE 22:23
Yeah, I think the big thing there is that, especially in honeymoon, the sensitivity to insulin makes people very wary of using more. Right, right, because you can get burned, right, by using more thinking you needed more, because yesterday, it clearly didn't work with this, you know, lunch that we provided we're giving the same lunch today. So I'm going to be more aggressive, you know, gave a quarter unit yesterday, today, I'm definitely giving a half a unit and then on the back end of the drop happens, right? The good thing to know is that in, you know, the coming out of honeymoon kind of moving out of that that phase is that you will have again, more consistency in more need for insulin, you won't have as much potential for those drops, where you learned they typically happened even if it wasn't every day, you probably got a good idea of where things needed to be lower in dose or, you know, that won't necessarily be the case. Once you're out of honeymoon,

Scott Benner 23:36
I feel like you I mean, when I tell people about it, I say you just kind of have to reset at that moment. That's when you go back to the setting Basal insulin pro tip, you start over again, you get the Basal straight, you reevaluate how long your Pre-Bolus time is, you reevaluate your meal insulin after you've re evaluated your Basal insulin. And you just kind of start over that. The truth is, is that I think that the transition from honeymoon to out of honeymoon is not actually much different sometimes than the transition from MDI, to pumping in that it's just the it's the same game different players, like I don't know how to like, how to think of it, it's like, you know, right church, wrong, pew. I don't know what the what the the thing is, like you're doing the same thing. But the pieces have all just sort of adjusted a little bit. And you have to just step back, take what you know about the thing you've been doing, and reapply it to the new situation.

Jennifer Smith, CDE 24:31
Right? Correct. And with pumping, you know that you've got a lot more precision that comes along with that. So if you've been doing things as precisely as possible with let's say, Just half units, right, and Basal that's given once or maybe twice a day. Now you can really address where insulin needs are heavier and are lighter through the course of a 24 hour days. Yeah, you can meet the need more precisely, thus, the benefit of doing some Basal testing again, even if you're just doing it overnight, and everybody wants to sleep. So if there's one time a day that you're going to do it, do it overnight,

Scott Benner 25:14
get that part done, get that part done. And you steal a bunch of a one C and some just good feelings. In general, if you're, if you're thinking all 24 hours are just a train wreck, like maybe you can at least get eight or nine of them straight, you know, and say, and it's a jumping off point, figure out the rest of the day. I think that when you were saying something a minute ago, this thought just jumped into my head, and I'm gonna put it here. And I think it fits. I think no matter the situation, maybe I'm talking about just diabetes or life in general. But do something is often the answer. People, there's a people freeze, wondering what the something should be. But if you're watching the same thing happen over and over and over again, if you just change the variables, the stressors on the situation, you might see something new, that helps you understand a bigger picture something different. And so, you know, if blood sugars are, I mean, I don't think it's a joke. But like online, sometimes somebody will throw up a graph and be like, I don't know what's wrong with this. And I'll literally just type more insulin. Because put in some more and watch what happens and then go Oh, cause and effect if they want to know where

Jennifer Smith, CDE 26:29
Right, yeah, not just more like, but where should I put that more insult

Scott Benner 26:35
thing, though, it's like do something right? Like, if you haven't been on vacation in 15 years, take $5 a week and put it in an envelope, you know, do something, try to change the situation a little bit. And I get that it's frightening. And I used to think, Jenny, I used to think that all these things that I saw around diabetes, were so specific to diabetes, but I've been having some personal things going on with my mom's health recently, which Jenny knows about? Probably not. Yeah, about right away. But but the point is, is that I recognize that the confusion, and the the lack of knowing when to jump and feeling like you're overwhelmed and feeling like you don't understand what to do next. It's life, not diabetes, right. And maybe it feels a little more dire in some situations than others. You know what I mean? Like standing in the store, trying to decide between two waxes for your car might not be as crazy as I wonder if I want to add three more Basal units to my kid or something like that. But the truth is, is that that inaction, that's what keeps you where you're at. So if you're sitting where you don't want to be, do something,

Jennifer Smith, CDE 27:47
right, and easier one to honestly do, let's say you are running high, you know, all day long, and you're higher after meals, but you're still just stuck high in that scenario, and a safer thing is just add a little bit more Basal add just a little bit more Basal, right. If instead, in time periods where you're not actually eating, it doesn't look too bad. And then you've got these big excursions after you eat just about, you know, anything, even a microscopic eight grams of carb, maybe and it goes rocketing up, well, then you may be okay with Basal and maybe the next place to add more. And again, not three units more, but maybe add a half a unit or adjust your insulin to carb ratio by one gram to get a little bit more insulin around the times that you see the change that you don't want to see happening.

Scott Benner 28:45
Yeah. Arden's been getting up in the morning going to school, and her blood sugar has been rising. This this school year, like 30 points in the morning. I tried to let the algorithm mess with it didn't work. I tried making just some simple Basal adjustments wasn't enough. And then finally I just said doors like when you leave the house from now on, we just Bolus three units, please. And she's like, what I was like, just throw in three units, get the car, go to school. I was like, because whatever's happening is happening enough. I believe it's happening. I trust that what I know is going to happen is going to happen. And she's using an algorithm. So if you make an uncovered Bolus, it removes her Basal immediately. So her Basal is like 1.2 in the morning. So I figured it was about a unit and a half or so to fix the number or to get ahead of the number. And we got to cover the Basal that's gone. So it's like just three. And then we adjusted off of that and did a little too much the next day we did a little less. The next day, we had a better outcome. The next day she forgot to do it, you know, on the third day and I was like see it happened again, like you know, like do this thing that made her trust the drive Do it and it becomes a little more important to her. I just think it's another example of do something. Right. You know, I, I've been saying online a lot to people lately. And you'll forgive me because I can't pronounce it in its in its origin language in Latin, but I've been telling people lately, Fortune favors the bold. Just try something, you know, they mean stand up thump your chest and go, I'm gonna take a swing here. Let's see what happens. And then you get back to this stuff you hear in the earlier pro tips, you know?

Jennifer Smith, CDE 30:35
Right. Well, and I think the bigger thing too, that you're, you're bringing in is try something, right? But then analyze what that trying did. Right? Don't just try it and be like, Wow, that clearly didn't work. Like, still focus on it? Well, it didn't work, your adjustment either left you to higher like, you know happened for you caused it to be a little bit too low in the algorithm couldn't really save you from that extra insulin well, but now, you know, so you use that for that information. And you move forward and you say, Okay, tomorrow, we're going to do it this way. I mean, that goes into, you know, a lot of things in terms of kind of the exiting of the honeymoon. It does it's try this, it looks like consistently in the past week, he's needed more insulin, right? Okay, great. You're trying to add more insulin? Is it enough? Is it getting to you to the place that you want to be? Insulin needs may actually continued to climb a little bit. It's not like a night and day like yesterday, we needed one unit and tomorrow, we're gonna need 10 units. That's not typically the exit of honeymoon. But over time, that lack of beta cells that is that was helping you write is going to show up very evidently, in that you don't return to that minimal amount of insulin,

Scott Benner 31:57
when you know what made me do this episode when Isabel told me that she thought it was necessary. It was that I had to get over that thing in my head that it's already in the podcast. Like I was like, No, it's in there already. You just have to listen to it. And then I thought, well, it's in there. But it's in a different way. Because what we just talked about, what about that? It really is the way when I'm when I was talking about God, I don't even know what episode it was not that I guess maybe that's a good point. It's hard to find them all. But But, but when I was talking about like sometimes you know, people's meal insulin right meal ratio, sometimes their insulin to carb ratio can be like spot on for a number of meals, but not work for a certain meal. And I always use that silly example, if you have meatloaf and mashed potatoes and green beans, and you count the carbs. And it says the carbs say Oh, this is five units, you make your Pre-Bolus. You spike, you end up correcting later with two units, which brings you down and you don't get low. Well, the next time you have the meatloaf in the mashed potato, seven units, you use you seven units, right? Like you see it happen. And then you take the leap, you stop looking back at the meal ration going no, that's not right, I counted the carbs, it's right, this is five units, very similarly to the idea of you're using a pen that only goes up to a half a unit and you keep using it and then watching a low blood sugar happen. I go, I'm powerless, but you're not powerless. Like you just need to go get a syringe and do it a different way. And you're not at the mercy of your carb ratio just because it works five days a week, but not on Sunday when you have meatloaf like right. So, right. It's all kind of the same idea. Like right, I know it sounds trite. But

Jennifer Smith, CDE 33:37
well, and that's I think it brings in a good a good piece too, in terms of, you know, multiple daily injections, then we move to pumping, and then we move to the fancy features of pumping. And then you might move to an algorithm driven pump, right? All of these things take. They take like evaluation. And a good example from somebody I worked with a while ago, who had started using one of the algorithm driven pumps, and she was fantastic. I love it. It's working so awesome. But it doesn't work on Friday night. I was like, Okay, well what were you doing on Friday night, that this doesn't work anymore for you. And she had this like, whole thing figured out for her dinner Friday nights that she would go out to with her husband. And on a conventional pump. She could use like, you know, a temporary Basal she could use an extended Bolus and she had it down, Pat, that was like just go to manual mode in your pump and use it that way overnight and Saturday morning. Turn your algorithm back on. She's like, why didn't I think of like, oh, I don't know either, but I hope that it helps and it it seemed to be much better than we did

Scott Benner 34:53
last night. Yeah. Because we went to a bar and art and got nachos with cheese steak on top of it and had French fries, and I crushed my first Bolus. I was like, I haven't been this excited about a Bolus and was like I was on top of it. And then I started seeing the fat rise, and we hit it again. And I was like I was over. And then I go upstairs to start working. And suddenly she jumps up her blood sugar jumps out, but I go downstairs to my lab and see what happened. I had some gummy bears, she told me and I was like, no, no, we can't put simple sugar on top of fat and protein. I was like, are you all out of your minds? Without like, significant I said, Aren't you were going to gummi bears in this situation, the Pre-Bolus would have needed to be causing a fall before you put the bear the bears in, you know. And then that would have been okay, but she just did the like my blood sugar's great thing, threw in some insulin, wait a little while and ate it. And it was not nearly enough. We needed to be more drastic with it. And so I was like, so my text, my text said this, I'll bleep it out. It said it said that it said, open the loop Bolus for you.

Jennifer Smith, CDE 36:06
And let and let the Basal run let's

Scott Benner 36:09
back to normal pumping for a minute and stop asking this algorithm do something that it doesn't know how to do. Because it's

Jennifer Smith, CDE 36:15
not it's not a learning algorithm. Unfortunately, it doesn't, you know, it doesn't react the way that we have the experience to say, I know this is what's going to happen. Please don't fiddle with the insulin that I put in purpose.

Scott Benner 36:32
Now's not the time to take the Basal away algorithm. Yes, gummy bears and cheese stick nachos happening right now. Anyway, Jenny, you know, there was in the past, there was a moment when I, I used to worry. And I think like, Well, we've already said these things. And people will find it. And now I realized that that's not how this is going to work that these continuing conversations are incredibly important. I think maybe the conversational part of this episode, and many episodes is more important even than the technical aspects of what was said inside of it. Right? You know, like, if you listen to the Pro Tip series, and you had your brain or my brain, or your experience, in my experience, you could derive from the Pro Tip series how to manage a honeymoon. But for people who are in that situation, I think they need the information here. Right, you know, in one spot. Yeah. And I just, I don't know if I was just like, super hopeful or lazy. I'm not sure. But I used to think like, just go listen to the pro tip episodes, it explains the whole thing, you know, and it really does. So I appreciate this, I think we're gonna have to, you know, like I said, I want to do one for you know, female hormones, menstruation, that kind of thing. Yeah, specific the next time we record. And then from there, I'm going to say this year, Jenny, because it will put us both on the hook. In 2022. Jenny and I are going to go back to certain pro tip episodes, were going to re listen to them on our time. And then incorporate questions that I'm collecting on Facebook, on how to supercharge those episodes. So they're going to kind of create some of them are going to get a part to kind of a situation. That's cool. That's what that's how we will you and I will spend our time seeing each other through the winter of 2022 sequels to certain episodes. I'm thinking of them as director's cuts for oh, there you go. Yeah, for older people who you remember the directors commentaries? Yes. Yeah. You know, where do you mean you'll flip the movie on and the audio goes away, and you just hear the guy go. In this shot. What I was thinking was that if the sun came in from the left,

Jennifer Smith, CDE 38:41
and we could could pan over here and listen to this music from this producer, you know, whatever. See

Scott Benner 38:47
how missoma Hykes eyes are glistening. i I told the DP like I don't know if you ever listened to them. They're pompous exchanges, Jenny and I will not do that. But we're gonna go back and listen to what we've said. Because I've done it a couple of times, like in Episode 500. I went back to Episode 11. That's bold with insulin. And I listened to it and like talked overtop of it like so people listening and episode. I think it's 100 Oh my god. 100 500. Sorry. In episode 100. I just basically did a director's cut of that, because I realized that when I said it, I was just saying it. Like there was and now I've lived all this time since then, and had these interactions with people that maybe there'd be more to add to that. And I think that exists for the Pro Tip series. Like and I'm excited. I'm sorry that you're gonna start getting emails from me that say please listen to this one before we talk again. But

Jennifer Smith, CDE 39:36
no, that's fine. You're busy and I can do it during my workouts. That's not usually I just That's my mental like, my moving like mental sort of like strategizing time is my exercise time. I am not like a sit in one space and like meditate. I'm a moving meditator But I can meditate on the episodes so we can make them better for everybody else. Excellent.

Scott Benner 40:04
I have a question, then I'll let you go. How do you make out listening to your own voice? Does it freak you out?

Jennifer Smith, CDE 40:12
It's I don't know, it's I guess it's kind of weird to me because I like I hear myself speak, you know, in your brain like, but when you hear yourself, it sounds different. I guess. I don't mind listening to myself. But yeah, I don't know. I don't think that I sound like what I sound like when I listen.

Scott Benner 40:35
No, no, no, I sound so right now we're recording, I can hear you and me and my headphones. I sound different in my headphones than I sound on the recording. And if I'm just speaking out into the world, I don't think I sound like the person on the podcast at all, but people think I do. But in my ear, it doesn't sound the same. Although And do you ever get on you ever? You ever say anything and hear yourself and go? Oh, Jenny, you should not have said it. You should have said it like this? Do you ever correct yourself?

Jennifer Smith, CDE 41:01
I do? Absolutely. And a lot of the ones that I've listened to don't like, oh, this would have been a better explanation. Or I could have put this in as an example. And that would have been better. So maybe we Yes, I think it's great to sort of rethink them. Because then we can add extra and

Scott Benner 41:15
I agree that there's there's just always going to be other stuff to say. And as we move forward into 2022, and beyond more people are going to be using algorithms. And there's going to be a whole new layer of understanding for diabetes, there's going to be things that you and I don't have an experience yet that, that through these experiences over and over again of using this technology, you're gonna come out I don't see an end to this podcast, I used to think it was finite. And now I think somebody is gonna need to, you know, make up a cure for this podcast not to be necessary.

Jennifer Smith, CDE 41:47
So Well, that's what I was gonna say I don't think until there's honestly a true like, you don't have to use any technology or anything. You just go in and get your bloodwork done and make sure your doctors like yep, you still look great. It's all perfect. I don't think you know the information that people need, especially with life changing and everything. I think it's purposeful. So

Scott Benner 42:10
I do too. I appreciate you doing this with me. It's the end of the year. So let me thank you for giving your time so greatly to the podcast.

A huge thanks to Jennifer Smith, my good friend for being on this episode of The Juicebox Podcast. Actually, Jenny does the podcast for fun, but she also does this stuff for a living. So if you'd like to hire her, you can at integrated diabetes.com After the music. I'll give you some agenda specifics. Don't forget the Facebook page for the podcast Juicebox Podcast, type one diabetes 20,000 people strong, just like you looking for advice, community and support from people who understand. Please take advantage of it. It's absolutely free, and really valuable.

My friend Jenny Smith has had type one diabetes for over 33 years. She holds a bachelor's degree in Human Nutrition and biology from the University of Wisconsin. She's a registered and licensed dietitian and certified diabetes educator and a certified trainer and most makes and models of insulin pumps and continuous glucose monitoring systems. She is also on every one of the diabetes pro tip and defining diabetes episodes. You can find those episodes in your podcast player. We're at Juicebox Podcast comm I actually think there's a list on the Facebook page to up in the Announcements section. Is that what they're calling it now that used to call it all a sudden? I'll find out for you. And then I'm going to tell you about the other stuff that you need to know. Yeah, so if you're on the private Facebook group, they call it featured now used to be announcements now it's featured. So if you go to the featured section, you'll find lists of the pro tips how to start listening to the podcast, defining diabetes, all kinds of stuff that you need. Actually, there's lists of ask Scott and Jenny episodes here. All kinds of good stuff. You should check it out. Look at there's so much to choose from special episodes after dark how we eat okay, I'm not going to bore you with this. But by the way, it's not boring. I'm just trying to fill you in. Are you arguing? am I arguing with nobody? Hold on a second. I want to tell you about the diabetes pro tips. So they began back on episode 210. With an episode called newly diagnosed or starting over, I'm going to try to list them for you pretty quickly. Episode 211 all about MDI episode 212 all about insulin episode 217 Pre-Bolus Episode 218 Temp Basal 219 Insulin pumping to 24 mastering a CGM to 25 Bumping nuts To 26 the perfect Bolus to 31 variables to 37 setting Basal insulin 256 exercise to 263 fat and protein 287 illness injury and surgery 301 glucagon and low V Gs 307 Emergency Room protocols 311 long term health 350 Bump and nudge part two 360 for pregnancy 371 explaining type one that's for other people like so you can share it with like a family member, a loved one who needs to understand type one 449 postpartum 470 weight loss and this episode 608 And there's going to be more in fact, there'll be another one next month on female hormones. Thank you so much for listening. If this is your first episode, please subscribe or follow in an audio app of your choosing. Apple podcasts, Spotify, Amazon music anywhere you get audio. I'll be back very soon with another episode of The Juicebox Podcast.


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