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Podcast Episodes

The Juicebox Podcast is from the writer of the popular diabetes parenting blog Arden's Day and the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad'. Hosted by Scott Benner, the show features intimate conversations of living and parenting with type I diabetes.

Filtering by Category: Dexcom

#609 Rocky and Bullwinkle

Scott Benner

Lacie is an adult living with type 1 diabetes.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 609 of the Juicebox Podcast.

On today's episode of The Juicebox Podcast we'll be speaking with Lacie. She is an adult with type one diabetes, who has a very different diagnosis story. Please remember, while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan are becoming bold with insulin. I'm not going to ruin the episode for you. But Lacey was involved in a trial as a child that identified her as having antibodies for type one diabetes. So she had five years to get ready for her diagnosis. Her story is terrific. She's Canadian, so you know she's super nice. All you got to do now is settle in, get your earphones just right. Get them where you like them. And let the story unfold. If you'd like a simple and easy way to support people with type one diabetes and support the Juicebox Podcast, take the survey AT T one D exchange.org. Forward slash juicebox. It'll take you less than 10 minutes. It's completely HIPAA compliant, absolutely anonymous, and it will actually help people.

This episode of The Juicebox Podcast is sponsored by Omni pod makers of the Omni pod dash, and the Omni pod promise. Learn more at Omni pod.com forward slash juice box. And a little later in the show. I'll tell you all about the dash and the promise. The podcast is also sponsored by Dexcom, makers of the Dexcom G six continuous glucose monitor. You can start today@dexcom.com Ford slash juice box get the CGM that my daughter has been wearing since she was a really little I probably should figure out exactly how long she's had it. But I mean, she was tiny. So maybe 10 years at least probably more. I don't know. I'd have to look. Anyway, that thing's Great. Dexcom comm forward slash juice box.

Lacie 2:23
My name is Lacie. I live in Ontario, Canada, and I have had diabetes for 20 years.

Scott Benner 2:30
You know, see now I see. We just had 20 minutes worth of technical problems that you put up with nicely. I couldn't understand why you're being so kind.

Lacie 2:41
And now you're blaming it on the fact that I'm Canadian. I'm not

Scott Benner 2:43
blaming it. I'm saying a nice thing. Right? I love a country that only stabs each other no shooting. I like that.

Lacie 2:50
Well, I wouldn't be too quick to jump on that. I used to live in Toronto plenty of people got shot Toronto. It's

Scott Benner 2:56
funny when I if I joke like that somebody who's ever been there. And I only say there now because I'm super aware of a person who was on recently who said they live in Toronto. And now I want to say it like T R and T Yeah, oh,

Lacie 3:10
people tend to remove letters from Toronto. I usually say Toronto, but a lot of people say Toronto or Toronto or something like that. It's just Toronto. We're lazy. We're lazy with our syllables.

Scott Benner 3:21
I loved it. I was like Toronto. Damn right. I live in guaranty I don't even know how to take words out of New Jersey or letters out in New Jersey. Okay, so you were how old are you now?

Lacie 3:31
I am 31

Scott Benner 3:33
she diagnosed in year 11 Yes, and you basically lived on the rim of the earth. Just wait. So probably no health care just a walrus took care of you or something like that. How did it go?

Lacie 3:44
Ah, no, actually, I I had quite a robust health care system nearby me. And actually, this was kind of what I wanted to come on here about because my diagnosis story didn't actually start when I was diagnosed it started when my brother was diagnosed.

Scott Benner 4:01
I know I'm excited and thank you for saying about so that was really great. He said about just now and it was so Canadian and now I'm just all warm inside non-reading So

Lacie 4:12
I didn't realize that we set it any differently than I always hear the jokes about people saying a boot but I didn't think it was that

Scott Benner 4:19
like you didn't do you about like you just okay yeah, it's fantastic. I love it it's probably from years and years of running from grizzly bears. I would think it's probably changed your voice boxes because all

Lacie 4:30
the money yeah just for the extra oxygen that needs to get in for running from you know deadly predator so

Scott Benner 4:34
it makes more sense. Yeah, least you don't have snakes. You don't have

Lacie 4:38
nothing that'll kill you now. Yeah,

Scott Benner 4:40
that's how I measure snakes. Some people measure them in meters. I measure them and if you're going to stiffen up and die after they

Lacie 4:48
bite you know our snakes are nice.

Scott Benner 4:51
Canada land of nice snakes. How so your brother has type one as well as he older or younger than you.

Lacie 4:58
He is two years older than me. So he was diagnosed when he was eight, and I was six.

Scott Benner 5:03
Interesting. And how did you just always? Like, did your family just always assume you were going to get type one? Or what do you like your no.

Lacie 5:13
So back, this was pre TrialNet days, but when my brother was diagnosed, my dad is also type one. And when they saw, okay, father's type one, first child is type one. There was a study going on in England and my brother's endocrinologist really wanted to send my blood as part of that study. So they hooked me up to an IV for I think most of the day, they were drawing intravenous blood samples every two hours, I had to have a shunt in my arm for pretty much most of the day. And they did all these tests and sent it off to England, and it came back and they're like, Yeah, give her five years. She'll have it.

Scott Benner 5:58
British. Seriously, they're always yeller.

Lacie 6:04
Yeah, I I've tried to find what the study was. I can't find it. But I also might just not be very good at googling.

Scott Benner 6:12
Yeah, though, so 20 years ago. I mean, it's sort of a no brainer, right? Your dad has it, your brother has it, they're like, if we're gonna find out if this thing works or not, we'll definitely take Lacey's blood. And I'm assuming like, if you had a pet Beaver, it would also have type one diabetes sounds like everyone in the house did.

Lacie 6:28
My dad, my uncle, my brother, and I all have type one. Wow,

Scott Benner 6:33
hey, is your mother. Does your mother have any autoimmune issues?

Lacie 6:38
Her autoimmune issues didn't show up until she was well into like her 40s and 50s. And she ended up with hypothyroidism. Which I also have. And my dad also has

Scott Benner 6:50
I'm starting to think that people with autoimmune issues put out a signal that other people with autoimmune issues pick up and we don't realize that but we're like, like little beacons, maybe. Wow, that's, um, look at you. That's crazy. So your uncle, your brother, your father yourself? Yes. All have type one eat 20 years ago, before anything like trial that exists. A doctor says, Hey, I think if we get your kids but how? Why did they have to take it the way they did?

Lacie 7:17
I have no idea. To be honest. I just remember being hooked up to this machine. I couldn't move around. And they kept bringing med students in to talk to us and asking these med students all these questions. And I remember my brother to smartass that he is sorry, cursing, sorry. answering all the questions before the med students could

Scott Benner 7:40
see understood type one better than they did?

Lacie 7:42
Well, yeah. And at that point, they were asking questions about you know, our history, like our medical history, our family history, stuff like that. So he was just spouting off all the answers before they could get it out.

Scott Benner 7:53
It's interesting that as time passes and technology, even medical technology gets better and better. Like it sounds like they were basically like they tapped. Like they wanted to get the blood right from your heart or something like that. Like it was just like, and now they just take this little it's

Lacie 8:08
just a finger poke. I remember when I was a kid going to diabetes clinic when they switched over from an IV blood draw to get your a one C to A finger poke to get your a one C and how excited I was.

Scott Benner 8:19
Bet you were that you were I know Arden gets the when she does the agency in the office. They do like it's a pretty heavy poke like they do your thumb usually because it's juicy here. And and it's a pretty big drop of blood compared to like what her contour meter uses. And she's always like, wow, like even that seems like vicious to her. I would imagine having an IV put in just to get your agency done, like how much blood did they need back then to do your agency a lot, I guess.

Lacie 8:47
Oh, they took full vials, I remember, I went to it was called the pediatric medical day unit in, in London, Ontario, call out to the London Health Sciences Center. Because those guys are amazing. They'd bring you in for your appointment and they would take you in do your blood draws and do your pee in a cup stuff. And then you wait right there while they did all the laboratory and then you'd go in to talk to the doctor. So you didn't have to go for multiple appointments to get, you know, the chemistry done or anything like that. And it was it was actually pretty, pretty. A lot of blood. I remember at the beginning it was a lot of blood. And then slowly it became less about the blood and more about peeing in a cup. And then they they, when they did the a one CS they had to almost like it wasn't a drop of blood on a thing they had to like, gouge your finger like they kept running this plastic thing over your finger and like milking it for blood to get a bunch out into this little thing but they still just poked your finger so it was better than an IV drop but not by much.

Scott Benner 9:50
My wife just bought these kits on Amazon to figure out what your blood type was. She thought it would be fun. She's a very sciency person. So she saw it online. She's like, Look how interesting they are. And she bought a bunch and all The rest of us were like, We don't care what blood type. And it was a similar thing like you needed, like a fair amount of blood, but it was from a finger stick. And we're all just sitting around this weightless round table by our sofa. Like we're all just kind of around the table bleeding everywhere. Just ridiculous.

Lacie 10:17
Yeah, that was pretty much what it was like it at clinic. And

Scott Benner 10:21
now I forgot what my blood type was. So that was definitely should have written it down. So how old are you when this happens? They draw that blood and tell you you're definitely I was six. And you didn't get it until you were

Lacie 10:33

  1. They said five years and it was five years almost on the diet. Wow.

Scott Benner 10:39
Okay. Did you live every day thinking you were gonna get type one diabetes? Or do you were there? Absolutely. Really?

Lacie 10:46
Oh, yeah. I was convinced anytime I got sick. Like if I had to go home from school because I wasn't feeling well. I would tell all my friends like, oh, yeah, I'm probably gonna come back with needles.

Scott Benner 10:57
I gotta go. I gotta pick some diabetes up at the hospital. Yeah, pretty much. Wow. So impactfully negative positive?

Lacie 11:10
Ah, hard to say. I mean, because I was so like, I guess you could say prepared, like, I knew this was gonna happen. I had already kind of gone through whatever grief stages I needed to go through before even getting my diagnosis. So when it came time for me to, you know, get my diagnosis and going into the hospital. We already had all the answers. So we just kind of give us the prescription for the insulin and send us home like we didn't really need or shouldn't say need. We didn't really want to stay for any of the additional lessons or stuff because I mean, my parents had already been through that with my brother. I had already kind of gone through it just from watching my dad and my brother with all their stuff. I remember, on the day I got diagnosed we actually had the fight with the ER doctor just kept repeating like call this doctor who was my brother's endocrinologist at the time, called the doctor. Tell him Lacey's diabetic, he'll come down and the doctor was like, There's no way you could know that this just you guys are just, you know, overreacting. It's fine. It's like, call the doctor.

Scott Benner 12:24
They'll come years ago, we send some blood to jolly old England. And I'm telling you right now I have type one diabetes. Let's get this thing going. What was your symptom? Did you catch it super early,

Lacie 12:34
super early. So I never actually had the extreme thirst and frequent urination and all that that you hear about with a lot of people. My family just made it a routine to test my blood sugar whenever I acted differently than normal. So if I was sick, I got a finger poke. If I had some sort of outburst, I got a finger poke. We were at my grandmother's house, and we were playing a board game. And apparently, I jumped across the table and tried to strangle my brother. So after that, my grandmother was like, Well, time to stick your finger and I think I was 17 at the time, which is what to you guys. 17

Scott Benner 13:19
Do you want to bring up the

Lacie 13:20
300 I've got the little conversion chart on my desktop right now.

Scott Benner 13:25
So have the conversion chart that's available at Juicebox Podcast comm

Lacie 13:29
i i Do I have the conversion chart available at juicebox podcast.com/conversion.

Scott Benner 13:33
Lazy job. Very good job. That was excellent. Are you tapping something on the table or fidgeting with your hands?

Lacie 13:43
I'm sorry, I was probably rocking in my chair.

Scott Benner 13:45
Okay, stop doing that. No, I'm just kidding. Just please. A light right now people listening to like, how did he know that there's this light tapping in my ear. And it's making me mental or mental or so tell me again. You were what you're

Lacie 14:02
eight. I was 11 at this time, and I was 17 in millimoles, which is 306 According to

Scott Benner 14:09
and a little surly, apparently.

Lacie 14:11
And I was grumpy. I was very cranky. And so they got that test and my grandmother called my dad and he asked if I had any other symptoms my grandmother's like, no, he's like, Okay, well, when I get off work, we'll go to the ER. We went to the ER but because I was still honeymooning at that point, by the time we got to the ER my blood sugar was back in normal range, I would imagine. Yeah. Which is where the the argument with the ER doctor because there's none of my tests

Scott Benner 14:42
perfect blood sugar, and they're just like, you don't know what you're out of your mind. People are crazy. That's probably Yeah. Yeah. What was your father when he was diagnosed?

Lacie 14:51
He This is an interesting story. So he was 16 when he was diagnosed with diabetes, however, because he was at the time I'm working as someone with a professional driving license, they diagnosed him as type two, because back then if you were diabetic with type one, you could not be a commercial driver of any sort, they would pull your license. So they diagnosed him as type two and put them on Metformin. And obviously, that didn't work like at all. But he stayed with that until he was in his 30s when my brother was diagnosed and one of the nurses that the hospital that was one of my brother's nurses was like, You're being dumb. They won't pull your license anymore. Just switch it get on insulin because you need this

Scott Benner 15:44
16 What was he like flying the Canadian, like space shuttle or what was he? What are you doing? You're 16 that you need a driver's license for?

Lacie 15:52
He was driving a truck like flower trucks, Flower delivery trucks.

Scott Benner 15:56
Cool thought is running guns for the mob or something like they just have French accents, right?

Lacie 16:03
I mean, kind of there's a lot of Hells Angels in Quebec.

Scott Benner 16:08
Well, that could be a great title for this episode. There's a lot of Hells Angels in Quebec. I might go with that. A little long, but damn it, if it fits, it fits. So my whole reasoning for asking was your grandmother didn't have any. Like, reference points. She didn't raise the type one.

Lacie 16:29
Not so much. I mean, at that point, she'd been around my my dad and my uncle long enough that she was kind of used to that. And also she was borderline type two. So she had a meter at her house that that's what she used to test me.

Scott Benner 16:46
Do you find yourself wondering when Metformin was made originally? Because the way you said it? Oh, it's introduced the ability of metformin to counter insulin resistance and address adult onset hyper glycaemia. Without weight gain or increased risk of hypoglycemia gradually gathered credence in Europe. And they after intense scrutiny, Metformin was introduced in the US in 95. This is interesting. You look at this 60 years of metformin use at

Lacie 17:20
a glance. So did I wonder what they gave him when he was first diagnosed? Oh, it

Scott Benner 17:24
sounds like it's been around for a long time. It's this, I have an article here. I have an article here. Put the date at the top of people learn to use the internet. Anyway, this, this article is titled 60 years of metformin use. So I don't know when it was written. Because some people don't know how to set up their websites. But

Lacie 17:51
well, my dad's not 60 yet. So then yeah, he probably would have been put on that

Scott Benner 17:55
would have been inside of that timeframe. Yeah, yeah. European Association for the Study of diabetes. put a date on your articles, please. So that's kind of amazing. I definitely didn't know that. I had no idea Metformin had been around that long.

Lacie 18:13
I knew it was an old drug I just didn't realize it was battle gets used

Scott Benner 18:16
for so many different things nowadays to there are people using it in aging studies.

Lacie 18:23
Yeah, I've heard about this, that they're trying to use it off label for quite a lot of things. And I don't know they tried to give it to me at one point and my family history of metformin having very bad reactions where we get really bad Bernie muscles like almost anyone in my family who'd ever taken Metformin has had terrible muscle burn. So I did not want to try

Scott Benner 18:45
not looking for that. I've seen it used off label for weight loss. There's this right here from the NIH Metformin is also allow Metformin also retards aging in model organisms and reduces the incidence of aging related diseases such as neurodegenerative disease, cancer in humans. The despite its widespread use the mechanisms by which Metformin exerts favorable effects on aging remain largely unknown. That's interesting. That's very from the NIH. That's the government. They wouldn't lie to us. No, not at all. I don't see why they would. Do you have a government? It's not

Lacie 19:29
we do. Yes. Yeah. Although not as crazy as yours. But yes,

Scott Benner 19:32
we do have a government that boys way too pretty to be in charge of things. I think there's a lot of people that agree with you. You must get like I would get distracted. I'd walk past I'd walk past midnight like I am so damn handsome and I would just stand there for a couple of minutes. I recorded something for the people on the Facebook page, and I put like a camera in front of me. And in the camera frame. I looked great. I thought it was good. I looked good in the mirror. I got the film back late like you know that The film listened to me. I took it to the photo mat, I moved the card from one place to the computer. And I opened it up and I was horrified when I saw myself.

Lacie 20:08
Oh, cameras are not kind, especially the digital ones now like webcams are they make you look like you're demonic. It's horrible.

Scott Benner 20:17
I felt like I looked better, but or definitely didn't anyway, I don't get to run Canada. For one of them. I'm not I'm not handsome enough into I guess I'm not Canadian, which would probably really slow the process down. Okay, so I really want to as best you can tell me because you were young when it happened? Do you think it had a negative impact on your psyche? Or Or no, do you think it was kind of nice to to know it was coming like I want to understand that piece of it.

Let's start with the basics. The Dexcom G six continuous glucose monitor is a small wearable sensor that sends your glucose numbers to a smart device or a receiver every five minutes. It's easy to wear, and it's easy to use. If you're using insulin, it's likely that you'll have fluctuations in your blood sugar. And knowing that they're coming is a big deal. Being able to see what direction and speed they're moving in is amazing. receiving alerts when your blood sugar crosses over a number that you want to know about his revolutionary, my daughter's Dexcom G six tells us if her blood sugar is over 120 We're under 70. But with a swipe of my finger, I could change that number to 125 131 50 It's completely up to us. You change the thresholds that the Dexcom alerts you at it's completely customizable. So think about this for a minute. Maybe you miss and don't quite count your carbs, right. Or you get low after some activity when July to know as it's happening instead of after it's too late. So that you can make some small adjustments to your insulin or to your carbohydrates to fix these problems before they become bigger. The Dexcom will help you with that and so much more. You can actually see your child's or your spouse's blood sugar's on your cell phone, and not just you. The user can allow up to 10 followers to see their blood sugars and receive alerts and alarms dexcom.com forward slash juice box head over there now and get started today. You can see the speed, direction and number of your blood sugar at a glance with the Dexcom G six, I opened my phone, I press one button open an app and can tell you that my daughter's blood sugar is currently 142. It's that simple. Hey, are you looking for a new insulin pump? Or trying to switch from multiple daily injections or a pen? Maybe you should take the test drive. Right? Maybe the Omni pod is right for you. So if you're ready to ditch the daily injections or send your pump packing, it's time to try the Omni pod tubeless wireless continuous insulin management system. Omni pod is a tubeless insulin pump. So there's nothing connected to you understand you wear the pod, but then there's no tubing that runs to a controller. There's a handheld device sort of looks like a little cell phone that you can run your Omni pod dash with now on the pod dash. Do you know it's possible that you may be eligible for a free 30 day trial the Omni pod dash? I mean, are you kidding me? Month. Check it out at Omni pod.com forward slash juice box. Here's what you're getting a tubeless insulin pump. The ability to wear your insulin pump while you shower, bathe, swim, run, jump frolic, flip, turn, jump, whatever you do. You don't have to disconnect like you do with those tubed insulin pumps. The Omni pod has that kind of freedom. And it's important. And here's the last bit maybe you're worried. I don't want to start today with the only pod dash Scott because what if on the pod comes out with something new. I want to be eligible for that. But you are because with the Omni pod promise you can upgrade to Omni pods latest technologies for no additional cost as soon as they're available to you and covered by insurance terms and conditions apply. But you can find out everything you need to know@omnipod.com forward slash juicebox. My daughter has been working on the pod at index comm forever and they are an amazing tandem. When you're done listening today. Check them out. I don't think you'll be disappointed on the pod.com forward slash juice box dexcom.com forward slash juice box links in the show notes links at juicebox podcast.com.

Lacie 24:54
I think possibly long term, it led to a bit more Burn out than if I had just been kind of dropped in the middle of it. Short term, I didn't get the sudden, like, life changing news kind of thing. I didn't get the trauma from that. But because I already knew so much. And like, the first time I held a needle was the first time I gave myself an injection, there was no practice shots. They walked in with the doll as I was giving my injection for lunch, like the doll that they wanted me to practice on. I was like, No, I got this. So there was a bit of there was a bit of a perfectionist expectation, I guess I would say, where it's, oh, she's great. She's got this. And so I don't think I really was given very much assistance or support, because it was assumed that I had a handle on it.

Scott Benner 25:52
That's interesting. That's sort of like when you're a great student, and then you get into a class you don't know, but nobody wants to help you. Because like, Lacey always does great with this stuff. Like you just people yeah, get get to the point where they feel like, Oh, this is just this works. We don't have to pay attention to any more. She understands.

Lacie 26:08
Yeah, and then add on to that the fact that they also had my brother with type one. And because he was more of a traditional diagnosis story of, you know, got really skinny, you had a long history of symptoms before they finally got him diagnosed. He kind of got this label as being a problem child with behavior issues when he was young. But it was because of his blood sugars. Like he was eight years old and getting into fights because his blood sugar was probably running it 300 400 All the time, right?

Scott Benner 26:41
I mean, and as we see from you when you tried to make him eat a sorry, piece. Like I'm not sorry, it just, is that how it went? Let me let me just imagine, I in my mind, you have the yellow and the green piece. you've launched yourself across the coffee table. Your grandmother is yelling, like, what's this all about? And then you're and you're, you're like, I'm not sorry? He deserves it. Like, do you guys get the irony? These are the sorry, nevermind. Like you're making total sense, but I feel like a lunatic. Wow, that sucks. I guess. I don't know. I mean, I can't. I guess it's that like old game you play when you're a kid, when you're like, you know, if I can tell you the exact day and time you were gonna die? Would you want to know?

Lacie 27:25
Yeah, it's kind of like that, right? Like, if it's gonna cause you to just worry about it all the time, then probably not. But if you can prepare for it, then that's better. But at the same time, because I had all the time to prepare, there was an assumption that I didn't need as much support. So like, I was 11. I, I handled my diabetes, for the most part, at least, I probably had a bit of help until I would say, going into high school in grade nine. So I think I would have been 13 or 14. At that point, it was completely me. I didn't have parents telling me how much insulin to take. I didn't have, you know, any sort of assistance with trying to figure things out. And I mean, at that point, when I first was diagnosed, I was taking three units of NPH total. That was it in a day. Slowly that developed into three shots, one of mph and regular mixed, one of just regular and one of just NPH. And that was so that I didn't have to take any needles while I was at school. And then in high school, here's your human log. Here's your Lantis. Take what you need. And that was kind of it. How was

Scott Benner 28:42
the translation from regular an MPH to a faster acting meal insulin because there's a lot more to do there. They left that. Yeah, well, you know, let me go back for a second. Sometimes little girls come off very mature. Like, do you mean like, they're almost like little moms walking around and stuff like that at times? Like, did you have that vibe? Did you just were your parents just like Lacey can handle it? Or

Lacie 29:06
oh, 100% Okay. 100% I was between, you know, in my family, I was the logical, you know, responsible one. Like, I used to get teased gently by my family because we'd be watching a movie and there'd be a sad scene. Everyone in the room is crying except me. Because I'm just like, no this logically, yes, this would happen. That would happen. That makes sense. It's just like, you don't have a soul. But that kind of got applied to my diabetes as well, where it's just like, Okay, well, you're you'll get it like the doctors tell you what to take and you'll get it. And I had this weird I had this weird dichotomy in my parents. My parents divorced when I was eight. So before my diagnosis, and my mom was very much eight If you do what the doctors tell you, you'll be fine. They're very smart. They've got it figured out, just do what they tell you. And my dad, and actually, most of my dad's side of the family believe that if you go to a doctor and don't already know what the problem is and how to fix it, you're going to get screwed. So, combining those two, what I got was doctors are very smart. They're the most intelligent people. They don't have this figured out. Therefore, no one has it figured out. Therefore, it doesn't matter.

Scott Benner 30:30
Though, I thought you were gonna say that you decided that doctors are gonna just screw me really, in a way because they're super smart, but they're gonna screw me over. So you just felt like no one had an answer.

Lacie 30:44
I felt like no one had an answer. And I mean, back then CGM weren't really a thing. Pumps, I remember going to a couple meetings about possibly getting a pump. And then them telling me I would have to test my blood sugar more because of the pump. And that seemed to dissuade me. So I was never really put on a pumper anything like that when I was a kid. So yeah, I just got into this headspace of, there are no answers. No one has this figured out. Just do the best you can. But don't really stress about it, because why stress about something that no one has an answer to anyways.

Scott Benner 31:22
So does that make it feel like your life is more finite? Didn't actually I probably should have put it did. Like, there's where my common sense would have really come into play. But I want to stop on it for a second. Because I think it's interesting back then, with with the technology that existed, the insulin that existed, it really was more of a management situation. And by management, I mean, like, let's just keep this as you know, with as much at least volatility as possible, I guess the end, we'll see how long we can keep these people alive. They'll put some insulin in the morning, like they didn't know faster insulin was gonna come. They didn't know that, you know, like, there was a moment in time. Like, really, I say it every time somebody brings it up, but you would just shoot some insulin in the morning, eat on schedule, and then shoot some insulin at dinner. Right? Yeah, pretty much. Yeah. And so that was just like, you're putting this baseline of nebulous insulin in you that's going to maybe if you're lucky, holds your blood sugar down, but nobody's testing anyway. So you wouldn't really know if you were using enough or not, or if you were having foods that were so high glycaemic, you know, index, load, etc, that it wouldn't have mattered if the sun wasn't in there with enough power, like there was no nuance to it whatsoever. Now, this whole

Lacie 32:41
idea of like sugar surfing or meeting, you know, the need with the insulin, like there was none of that because you didn't have the data that you needed. And I'm a very data driven person. So for me, like testing three times a day, which was the recommendation at that point. Not even every time you ate, or every time you took insulin just three times a day.

Scott Benner 33:02
Not enough,

Lacie 33:03
it's not enough. So I was looking at it going, I can't use this. What is this? Like, you want me to try and figure out what needs to change or what needs to happen, but I don't have enough information to make that call. And even the doctors like when I'd go in. And they'd look at things, then they're just like, well, I don't know, we'll try doing this and see what three months. But I was a kid like I was I was changing so fast that that wasn't enough. So I got to a point where, because the data that I was getting from the testing three times a day wasn't enough, and it wasn't really doing any good. I just stopped testing.

Scott Benner 33:43
Yeah, because what was the point? Right, what were you getting out of the number? Yeah,

Lacie 33:46
why would I cause myself pain when I'm not really getting any useful information out of this, I'll just go by how I feel if I feel crappy. I'll take a little bit more. If I, you know, thinks I need a bit more clarity on what my number is. I'll test but like, I think I had strips going expired. Because of how infrequently I was tested. I

Scott Benner 34:07
wouldn't bother. Yeah, I have to say, that makes sense to me. It really does. I mean, I don't know how often I would do something like that if the information coming back wasn't helping. So you said you got human log in your teens?

Lacie 34:22
Yeah, I think it was 13 or 14 When I went to high school. So essentially, my elementary school didn't want me bringing needles to school, and didn't want me know when at the school was well, not that I needed them to inject me because I could inject myself but no one really wanted to take responsibility for that. So we did the nNr while I was in elementary school, because it allowed us to do one in the morning before I went to school, and then the other two when I got home later on in the day, but for high school, it was less of an issue. There's a lot more autonomy, and my high school didn't have a problem with me bringing the needles to school because it was probably an easier way for them. Manage, they didn't have to do anything about it so they didn't really care. And I was already on an IEP which is a guest kind of like your guys's legal documents for our 401k or whatever it is Wait that's a retirement plans.

Scott Benner 35:20
Why do I say that? podcast a 504 plan off the top my head, I'm in trouble. No, I get that vibe because that's one of the ways I got this. The the school to just leave us alone was I said like, look, you know, if she's texting me, you're out of this, like you haven't made any of these decisions. And they're staring at me. And I was like to be more candid. Let me be blunt. If she drops dead, it's my fault, not your fault. And they were like, Oh, that we like and then they, they just like yeah, sure. texter. Like get us out of this. You could see how excited they were to be out of the process.

Lacie 36:08
Yeah, you know, in elementary school that worked out as you know, just take the needles outside of school hours. And then when I got to high school, it was a combination of the school was okay with me bringing needles to school. I already had an individualized education plan for other things. So adding this to it wasn't that big a deal. And also, there was a cafeteria at school. So it gave me more flexibility to be able to like because I started getting lunch at the cafeteria. I love my mom. She hates cooking. So when she had she had the ability to just give me money and stop making lunches. She was like, great. Here's 20 bucks. There's your lunch for the week.

Scott Benner 36:50
I can't accept it enough. I that making lunches, doing homework? Like when that stuff stops you like Oh, thank god like it was yes, it feels like so much. I don't know why I just hated that part of being a parent.

Lacie 37:04
Yeah, it's so she's like, there's a cafeteria. Great. Here's 20 bucks lunch costs about I think it was at that time, a fries of burger of some kind and a drink were $3. So she's like, you can spend $3 a day on lunch? And you've got $5 Extra if you want to get treats. All right,

Scott Benner 37:22
cool. You me out of this? Yeah, pretty much the same thing is the school with the care. They're like, listen, let me just, I want to step away quietly. So. So when this when this occurs, this changeover occurs and you're older, and now you're shooting at meal times. Is that a big change? Like, in the way you think about diabetes?

Lacie 37:45
No, because it was still with the just testing, you know, a few times a day. So to me, it was just changing from three times to four times it didn't really feel any? Well, I guess five times if you include the night time one, it didn't really feel any different to me. Okay, so I still wasn't really thinking of it as this can give you more control. Because there wasn't the data for the control. It was just this, this is the new regimen, you know, you do at mealtimes. And then whenever you eat something, take this much. It took forever for us to even get like carb counting or a sliding scale in place. It was just kind of a very static. This is how much you take it each meal kind of thing. Okay,

Scott Benner 38:29
so regimens the exact right word, right? It's just yeah, do this, then do that. Do this and do that. Now we're going to do that a little more frequently. And what was the outcome? What were your outcomes? Like? Like, were you having a one seat? Like, do you know?

Lacie 38:44
Oh, not great, not great. I remember when I was diagnosed, my a one C wasn't diabetic yet, because they caught it so early. It was like 5.2 or something like that. And then it slowly increased while I was in the pediatric endocrinology. I think my taco was 10 by the time I exited into the adult system, because there was just it was just my body slowly given up the ghost, like it was just my pancreas slowly, deteriorating until the point where there was no insulin helping out anymore from my body. And the control just was not there.

Scott Benner 39:26
Yeah. 10 anyone sees equivalent of like, 240 average blood sugar.

Lacie 39:31
Oh, yeah. And it was swinging. I was swinging wildly.

Scott Benner 39:35
So you think you were even higher? You were in the three and four hundreds of times? Oh, probably. Yeah. I don't doubt that. But you probably didn't get low very frequently. Like dizzy, I guess dizzy?

Lacie 39:45
No, I didn't get low very frequently. Although I may have but I developed pretty severe hypoglycemia unawareness. That was in. I found out about that later on when I was in college. But yeah, it was. It just kind of slowly devolved. Like there was no real. There was no control. At that point. It was just like you said management, maybe management of symptoms, but not really control

Scott Benner 40:17
that unawareness thing. We never really dig into that for some reason, it may be you know, because it happened to you. Does that mean your blood sugar's super low, and everything else about you is fine, or your blood sugar's super low, and you're just not having symptoms, but to an outsider, you look altered.

Lacie 40:35
Um, for me, it was a combination of not having the capacity to notice the symptoms, so that someone from the outside might notice, but because my brain has already been shut off by the low blood sugar, I couldn't notice.

Scott Benner 40:52
Okay, so you were functioning but not functioning well, but unaware of it.

Lacie 40:57
Yeah. And I think that there was a combination of that with also just a minimization of symptoms, like my body didn't respond as dramatically. Because there was some time there was actually one time when I was in college, I was on a bus coming back from work, and I thought it was high. I was like, Man, my stomach's really upset. Like, I bet you any money that I'm high, I should probably take a correction. This is at the point that I'm starting to gain control over my sugar's again. Like I should probably take a correction. And I was seconds away from just taking a couple of units, like not even checking my sugar. And I was like, You know what, no, I'll test because I feel really bad. And if it's too high, then I'll know I need to take more. I tested and I was 1.6. Which is 29. Oh, wow. Yeah. And I was ready to take more insulin because I thought I was I was high. There was no way that I was low. So at that, that was actually the the incident that made me decide to go Dexcom goes that that happened? Maybe seven years ago. Wow. Yeah.

Scott Benner 42:11
So 13 years into diabetes. And you were still like, I have this. I hope Arden hears this one one day. I hope Arden hears them all one day. I don't know if y'all realize this or not. But this podcast is just a time capsule for my kid. I'm glad you guys. Oh, absolutely. And I hope she hears this one one day, because when she was little she be like, I don't need to test I feel fine. And I would always I always say the same thing. I'm like, Listen to how you felt was important. There wouldn't be any meters or glucose monitors or anything. You just do stuff when you felt a certain way. I was like, that's not how this goes. But that's fascinating. Like you just had a symptom. You assumed it was a high symptom book. I'm glad you're tested. Yeah, me too. I mean, growing luckily,

Lacie 42:56
luckily, the bus had just stopped at a stop outside of McDonald's. So I ran in and scarf down as much food as

Scott Benner 43:03
major blood sugar 500. Yeah, pretty much. I think back to driving with my friend, Mike, when we were younger. And it was always known that whoever was in the front seat while Mike was driving, you had to sort of be driving as well. Like you were just

Lacie 43:19
paying attention to Mike's symptoms. Well,

Scott Benner 43:22
we always just, you know, it's funny, we knew so little about it. And he wasn't, I don't think he knew very much about it. But it was just the idea that sometimes like you know, you'd make a right turn and you wouldn't get all the way into the lane. He just would reach over sometimes it just nudge the wheel a little bit. You'd be like, Oh, wow. But it wasn't constantly sometimes he was fine. And sometimes he had, you know, but he would get surly. And I look back now and I realized that his blood sugar was high. And that people just thought he was like jerk I didn't even personally personality, but he didn't is such a lovely person. And but that's really that's really something else at the time you got the human log did meters get more portable, at that point to

Lacie 44:06
the meters were decently portable. They all came in a little like nylon cases or whatever. So I could fit one of those. Like, I could fit my meter in my back pocket, and I could fit my syringe and my bottle of human walk in my front pocket. And that was just kind of how things went.

Scott Benner 44:22
Yeah. Yeah. Mike had this little like, pouch and everything was just in it. He didn't carry a meter though. Interesting. Wow. Okay, so seven years ago, you almost Bolus when you're incredibly low. You realize I gotta pay better attention to this. And you find seven years ago is is pretty close to the beginning of Dexcom. So it's not like they existed for long and you were ignoring them, right? No, so

Lacie 44:47
that was oh, maybe it wasn't seven years ago. Maybe it was more recently than that. It was when I was in college, which would have been 20 1220 13 Yeah, so like, seven, eight years ago, so yeah, I guess there's that. Um, but yeah, at that point, I was actually starting, I had already started to kind of be like, Okay, this, this isn't good. Like I need to, I need to sort myself out. I think after high school, I pretty much stopped going to endocrinologists and stopped getting my UNC checks and stop testing and stop doing everything still took my insulin that was about it. stopped doing any of that until I got to college. And specifically until I moved in with my now husband, who was like, wait, don't you have to go to a doctor about this? And I'm like, Yeah, but I don't have one here. And I don't know where one is. Then he just kind of one day was out driving and texts me. And he's like, there's literally an endocrinologist office, three blocks from our place, like, call them.

Scott Benner 45:51
Well, that's loving Good for him. He's like, I like this girl. I don't need to start over again with another one. So yeah, let's keep you good. And so this is your first how long ago was this? Now when you this? When you say this? Is this seven years range?

Lacie 46:07
Yeah, it's about eight, a little bit before this incident happened. It was about eight years. So I went into this new endocrinologist office. Turned out it was a great clinic. There's LMC actually, I think you had someone earlier who was from Ontario who went to LMC. They're fantastic. And I, what's gotten with them? What was our

Scott Benner 46:28
first step of like, making the shift? Like you come in from this experience that we've been talking about for, you know, 45 minutes now. And now suddenly, you're going to be you know, quote, unquote, take better care of yourself. How does that start?

Lacie 46:41
It starts with a very good CDE. Because I originally was like, just give me my a one sees, I'll handle it. Like, I was convinced that no one had any answers for me. So there was no point in really having the discussions. And when I started talking to her, I realized, oh, you know, some stuff. This is good. Tell me everything, you know.

Scott Benner 47:05
So it's a reeducation. Really. Yeah. And it was

Lacie 47:09
finally finally finding like the information that I had been just convinced didn't exist.

Scott Benner 47:15
And willing, I was gonna say to hear it, not just say, Oh, no one knows. Because I see people get lulled into that after long periods of diabetes, especially people diagnosed right around your time, right in in the past. You just had this experience for so long, not only do you believe no one knows, this is what you think it is. And even when someone comes along and says, Hey, you know what, not for nothing. But if you just turn this dial on, do this here, and why don't you try Pre-Bolus thing? This, this would be a six a one see you It's hard to believe, right?

Lacie 47:47
Oh, yeah. And as soon as I started talking with her, I was just like, you know, this, you know, what's going on? She didn't have diabetes, but she she understood enough of it that she could talk about it intelligently. It wasn't a we'll just do this, everything will be fine. It was no like this is this is hard. This is constant, you have to be paying attention. And I understand how much brainpower that takes and how much energy that takes. So let's try and make this as easy as possible. And as low in energy as possible, so that you're actually able to, to follow through,

Scott Benner 48:24
through remember how that was accomplished. Like how did they How did she make it easy?

Lacie 48:29
First step was, she gave me a physician's Dexcom so one of the ones that I could see the results, but I had to get it back at the end of the 10 days, or whatever it

Scott Benner 48:39
was. Yeah. Yeah.

Lacie 48:42
So she gave me pens, she's like, you're gonna stop using syringes you look at the drug dealer, here's some pens so that you're actually you know, don't look scary to people when you have to take an injection let's get you a good tester let's get you let's get this Dexcom on us so that we can check your levels and make sure your your stuffs correct let's you know, get your carb ratios dialed in. It was kind of a slow process. They pretty much took what I had been doing previous previously which was the same regimen I'd been using since I was a teenager at that point. And just started from there and then just dial that in.

Scott Benner 49:21
Yeah, how far away from where you ended was what you were doing. Like were your Basal is that much different where your ID

Lacie 49:29
Oh, my Basal is didn't change a lot they adjusted slightly. I was taking way too much mealtime insulin though, like twice as much mealtime insulin as I needed.

Scott Benner 49:38
So were you just getting level a lot. I was driving myself

Lacie 49:41
into the ground because I couldn't feel it. I didn't know.

Scott Benner 49:46
How freaky was it to see the Dexcom data the first time.

Lacie 49:50
It was strange. It was so strange. I was for one I didn't realize I spiked that high after eating because it had always come down but it next Time I tested and then I didn't realize that I was going low that frequently.

Scott Benner 50:06
Yeah. It's so interesting to hear you say that because that's right about the time, I figured all that out for Arden and saw those first CGM graphs. And I was like, wait a minute, you know, the way I tell the story is that I used to put art into bed at 180. And she'd wake up at 90. And I thought I was a genius. But she would go from 180 to like 50. And then she'd sit at 50 for hours. And then I guess her liver would probably kick in, and then drift her back up while she was sleeping to 90. And I would I would just test her before she went to bed. 180 That's her setting for going to bed. You know, you make her highs so she can get through the night. And then look, she's 90 in the morning. It's perfect. She had to be 180 because she finished perfectly at 90. I never realized how low she got or everything else that was going on. And once you see it represented visually, you're like, oh my god, this is all wrong. I'm doing everything wrong.

Lacie 51:03
Yeah, yeah. So we got all that sorted out. And then the next step was getting me on a pump. Luckily, in Canada, well, at least in Ontario, I'm not sure if this is Canada wide or not. We have a it's called the assistive devices program, which pays for the pump, upfront costs 100%, and also gives you a grant every quarter to help cover the cost of this plies. So they got me hooked up with that they got me at the time it was the Animus ping got me on the pump. We talked about getting me on Dexcom. But at that point, nothing covered Dexcom. Like it wasn't the insurance companies didn't cover it, there was no government program to help with it. And I just couldn't afford it as a college kid. So they at least got me the pump. And with that came the ability to make those micro adjustments where I was like, okay, I can make these adjustments, but I need the data to make the adjustments. Therefore, I'm going to test 15 times a day now. And that's what I did. I just upped my testing to you know, as soon as I got up, you know, when I ate after I ate literally every second, I was trying to test my blood sugar to see where I was at. Because I actually had the control with the pump that I could make the adjustments if I had data, right. So it went from I don't want to test my sugar. So I don't want to pump too. Oh, this is what the pump can do. Okay, I'll test my sugar.

Scott Benner 52:33
See, do you listen to the podcast? I do. Yeah. Okay. So when I'm doing the ads for Omnipod and Dexcom. Specifically, do you just sit there and think? Yeah, yeah, that's right. That's right.

Lacie 52:43
Um, so the only thing that you have an ad for that I don't already have is the Omni pod because I'm now on the tandem. Right. And the G voc because I don't think it's available in Canada.

Scott Benner 52:56
Thank you. And I hope the advertisers are listening. But that's not what I'm like, I just you know what? We're done. Now. I didn't realize you didn't have it. No, no, I know, I just meant, like when I'm talking about the benefits of pumping, and I'm talking about the benefits of seeing your data, like that 100% of stuff saved your life changed. Yeah. Functionally changed how you live?

Lacie 53:18
Oh, absolutely. Absolutely.

Scott Benner 53:20
Which, you know, can I ask?

Lacie 53:22
Last test was 6.0. Okay, two,

Scott Benner 53:26
very well done. That's excellent. I believe that's different than 13. Oh, yeah.

Lacie 53:31
That's, that is quite a different level. And I didn't realize how much better I feel with the lower agencies. So when I got to LMC. They tested my agency and it was nine. Just from like, the education that they gave me. We got it down to eight. With the pump. We got it down to mid sevens with the CGM, which I got. Four years ago. I got the Dexcom G six when as soon as it came to Canada, that's what I got. I got that down to mid sixes. And then your podcast got me down to six.

Scott Benner 54:11
Nice. Oh, that is excellent. You I am excited for you. You must be thrilled. I love that you talked about feeling differently. Arden went swimming with friends the other night. So she was away from the CGM for a while she got a little low. She was like 63 ish when they got out of the pool. And I texted her and I was like, hey, you know your blood sugar's low or she doesn't matter. We're coming home. I was making pizzas. I can make pizzas from scratch. It's not a big deal. I was making pizza for her and her friends. They were going to come back from this friend's house, etc. And so Arden's like doesn't matter. We're on our way home, perfect. Like in her mind, she's like 63 Pizza Pre-Bolus This is perfect. And you know, like so she rolls into the house, but I didn't realize they were further away than I thought they were so by the time she got home She was like 55. And so again, whatever she starts eating the food, and we just get the Bolus in wrong. I don't know another way to put it, there was a lot going on and we just kind of botched the Bolus. And our blood sugar ended up in like the 200 range. And it took us a couple hours to fix it. And by the time she went to bed, Dad, my legs hurt. My legs hurt so bad where you come from my legs, rub my knees from my ankles, and she's like, I don't understand why my legs hurt so much. I was like, it's from the higher blood sugar. I know. You went to 200 It's 200. I know it's just 200 it doesn't seem like a big deal. But your body's so accustomed to being in a real like I can pull Arden's blood sugar up right now. It's like I'm doing an ad Hold on a second Arden's blood sugar 78. And if I go back 12 hours, the highest it's been. Let me take a look here. The highest Arden's blood sugar has been in the last 12 hours is 135. And it was basically between 120 Yeah, we had kind of a time, where overnight where it took us a while to get from 120 back down to under 100. Again, maybe three or four hours. And I don't honestly don't know what that was because she and I were watching the movie last night together. And she was like 77. And I was like, this is perfect for going to bed. Which is so weird compared to before. And I was like if we just make her 180 then. But then, as the movie ended, she started to drift up a little bit, but 107 I thought I had it. And then I didn't. Yeah, but since my gosh, since it's it's almost 11 Now since 5am Arden's blood sugar has been between 178 Yeah. So that's what she's accustomed to. Oh, yeah.

Lacie 56:48
And as soon as you go outside of that, like you feel it. And that's the one thing that I've noticed is that now that I'm used to blood sugar's that are stable and a lot lower than they used to be when I do spike up to 15, which is 270 for you guys. Like I feel terrible,

Scott Benner 57:07
right? Like, really, I'm, like, difficult to function. Terrible.

Lacie 57:11
Yeah. And just, I'm nauseous and I don't feel good, and I can't think properly. And it's just I get angry. That is one thing that has not gone away. My high blood sugars put me into a blind rage sometimes. And it's just I'm not, I am not in a good place.

Scott Benner 57:29
Well, well, I if you ever listened to Jenny on like the Pro Tip series and stuff like that, you can tell by listening to her. She's a careful, like, eater, a healthy eater. And I think part of that is because she does not like how she feels when her blood sugar gets higher. Yeah, you know, it's just, it's just is what it is, you know, it's I mean, you have diabetes, you're gonna have to make some, you have to pay attention to some things, or you're going to have this other stuff. And I just don't want people to get in a situation where my legs hurt is a normal part of my life.

Lacie 58:02
You know? Yeah. And I mean, eventually your legs stop hurting, which is crazy. Yeah, well,

Scott Benner 58:06
then you're kind of really in trouble. Because yeah, then your body's making allowances that are internal that are going to lead to other issues. Do you think about that ever? Like, like your father, you said is still alive? How's his health?

Lacie 58:19
Ah, it's okay. He is just starting to see a little bit of retinopathy, he said, to get a laser on his eyes to just kind of stop up some bleeds. Other than that, I mean, he's got high blood pressure, high cholesterol and a host of other issues outside of diabetes. But he is a full time like, he goes out he has a farm that he works on all day. Like he's, he's physically capable. He's very busy and he doesn't feel badly.

Scott Benner 58:55
For my farming snowballs, there's got to be a lot of work.

Lacie 58:59
Actually, beef cattle, we got a lot of cows up in our prairie area. It's not

Scott Benner 59:03
that it's icicles. He's a cattle farmer. Yeah, in northern Ontario. Wow. That's kind of cool. That sounds like like something I would want on my LinkedIn profile. But I guess the cattle farmer wouldn't have a LinkedIn profile. So whatever. Actually, I

Lacie 59:18
think they do. I mean, farming is big business. No, no, I

Scott Benner 59:20
know. I just didn't think they would be bothered with it. It just seems like that would people to me. I guess I wanted to make that bad joke so badly.

Lacie 59:32
You've worked so hard to get that in there and

Scott Benner 59:37
I don't care. I'll give away the editing time for this. Well, so that's good, but And how about your health?

Lacie 59:46
Oh, it's it's much better since I've managed to get everything under control. I mean, COVID kind of messed up my whole gym routine, but beyond that, like, yeah, my just went for an idea. doctor's visit. And he looked at my eyes. He's like, wait a second, I saw in your chart that you're diabetic. It's like, yeah, it's like that. Oh, okay. I would not have known that otherwise, which is what you want to hear, right?

Scott Benner 1:00:10
100% A The only thing I would want to hear more as Yeah, I found a podcast after that, because I just I'm looking for a spread of word. But that's not. I think that's amazing. I think that's super exciting for you. Because there's no doubt that on the path you were on, you wouldn't be here that much longer. I don't think,

Lacie 1:00:27
no, I still don't know how I frankly, survived from the age of about 18 to 23. I got someone looking out for me up there, because there was no other way that I didn't put myself into a coffin.

Scott Benner 1:00:41
Wow. Yeah, I do. It's such an underserved time. For Type ones. Is that college age? And really, you call it college age, if you want. But you know, that last part while your brains forming still? Yeah, like right in there. It's it's your outside of your parents purview? You're 100% sure that you know everything about the whole world, not just diabetes. You know, like I love I love during political cycles listening to like, 20 year old people. Like this is the first time they they think they're the first people who, who ever noticed that the world might not be exactly right. It's like, none of us knew we're big dummies, you figured it out. Great job. Yeah, in that moment, you know, and you just think, yeah, I guess you do really feel either. Like you need to put this thing aside and not deal with it. Because it's too much. You don't know what you're doing? Or you feel a little invincible or a mixture of those things, I guess. But yeah, that's a scary time. From my perspective, at least.

Lacie 1:01:47
Oh, yeah. And I mean, at that point, I thought I was bulletproof. Right. Like I went on a six month volunteer program to BC and then Ukraine. Wow. Wow, having absolutely no control over my blood sugar's I'm saving

Scott Benner 1:02:02
the beaver population.

Lacie 1:02:05
In BC, it wasn't beavers, what were we working on? We did do a lot of environmental work when I was in DC. And then in Ukraine, I was doing work for a university over there. Again, kind of environmentally focused, but a little bit less, because they still don't have like regular recycling programs and things like that. So

Scott Benner 1:02:25
well, well, you're like a decent person on top of all this.

No, I mean, like I didn't, like you know, like, that's a kind thing to give your time to. Where'd you meet the husband? Guy? Where'd you find him?

Lacie 1:02:40
Ah, through friends at college. In Toronto.

Scott Benner 1:02:44
It's a setup, like a blind date.

Lacie 1:02:47
Not so much. It was more. One of my friends was seeing one of his friends. And so we went over to their apartment. And those two kind of wandered off and Morgan and I were just kind of left there being like, Hi.

Scott Benner 1:03:05
This is awkward. I'm not showing you my vagina like she's going to do. So you know? Oh, yeah, pretty much actually. That's 100% what happened? So she brought you you were you were the wing woman, you were brought along for cover, so that she could safely go off and do whatever it was she was thinking of doing? Yeah, pretty much, and then you got bored. But that boy boobs is that about what?

Lacie 1:03:28
Not that day.

Scott Benner 1:03:31
Try to imagine how funny this is gonna sound bleeped out when I'm talking. Because then people will fill in like right now all of you listening. Whatever you filled in. That's how you feel just because you don't know what I said. I might have said, keychain. You have no idea how long you guys been together?

Lacie 1:03:55
We've been together for nine or 10 years, and we just got married almost two years ago.

Scott Benner 1:04:02
Congratulations. Thank you. You're right before COVID You got married.

Lacie 1:04:06
Literally September of 2019. Right before COVID

Scott Benner 1:04:09
snuck it in. You're probably a super spreader. You didn't even know it.

Lacie 1:04:13
We have a lot of friends who are kind of family friends who now they were trying to get married in 2020. And all our parents are just like, Thank God, you guys got married and

Scott Benner 1:04:24
my son was supposed to go to a wedding in the middle of COVID which of course got pushed. And he's like, Oh, I got another invitation for when I said they're gonna break up before they get married. So much time, you know, good. Oh, I know. I feel so bad for these people. It really is crazy. Are you guys thinking of making any little Canadians or what are you doing?

Lacie 1:04:46
Well, that was part of the reason why I found your podcast. I was looking for podcasts on diabetes management to get ready for pregnancy. So yeah, we are in the process

Scott Benner 1:04:59
of You're having a lot of banging constantly, Scott. Nothing's happening. I don't know. I frankly am tired of it. Oh my God, is he gonna do that again? Again, buddy. Read a book. What are you doing? I can't We can't do it the same way every time. Oh god. That's interesting. Did you hear the episode that Jenny and I did for the pro tips?

Lacie 1:05:27
The pregnancy one?

Scott Benner 1:05:28
Yes. It's good, right? It is. Yeah,

Lacie 1:05:30
all the pro tips have been really good.

Scott Benner 1:05:32
Well, I wasn't looking for that. But I appreciate you saying that. How about listening to Sam attr trimesters was that help? She was

Lacie 1:05:38
actually the first episode that I found was I think her second trimester was the the first episode that I ran across. And then from there started listening to the rest of the

Scott Benner 1:05:48
let me correct myself, Samantha. It's a, I would call her Sam. And she'd be like, Samantha, I'm like, I'm sorry. I don't know why I can't, I would write it down in front of myself. I really am. Like, I'm probably like four IQ points away from falling over, you know, just get right in front of myself. I'd look at even when you and I were messing with technical problems at the beginning. Like your your zoom comes up. I'm assuming your name and your husband's name together.

Lacie 1:06:13
Yeah, it is. Yeah,

Scott Benner 1:06:14
I know. You're Lacey. And I'm still saying your husband's name bom bom like fighting with a thing. I'm like, once I got it done, I was like, am I gonna bring that up? And now just let it go. And for all the things I understand, it's fascinating how dumb I am about other stuff. But anyway, is there anything that we didn't talk about that you were hoping to get to?

Lacie 1:06:33
I don't really think so. No, I think we covered everything.

Scott Benner 1:06:35
Cool. I enjoyed this. I love you. Fine. Yeah, I know. I know. You're just human like me, you just live slightly north of me. And there's really nothing different, except you said a boot and a couple of other things. But I just I don't know, I always enjoy my Canadian conversations. I always feel bad that it takes longer for you guys to get your technology when it comes out.

Lacie 1:06:56
Yeah, that's that's mostly just to do with our more rigorous testing processes. I mean, your FDA tends to let things through pretty easy. Ours is a bit more complicated. So we always get delayed.

Scott Benner 1:07:07
It's funny. It's funny that you that you see it that way because I think Americans would see the FDA as a long process to since

Lacie 1:07:14
Oh, it absolutely is. And doing the FDA processes probably makes everything else quicker. But I mean, there's a lot of stuff you guys have that they've just said no up here too. So

Scott Benner 1:07:22
yeah, well, if you just get an uglier Prime Minister, things might go better. Yeah, we'll see. Just the next time. Just pick the oldest beat up person on the list. Just be like, That guy doesn't look like he never looks in a mirror. This woman hasn't seen a mirror in 20 years. I'm voting for her. Do you get?

Lacie 1:07:37
Um, yeah, we we vote? Of course we vote?

Scott Benner 1:07:40
I don't know. Of course you vote. It's Catala you live on Mars in my world? I don't know you could be living under martial law. I have no idea. I don't know if that. In my mind. There are penguins telling you what to do. So I don't

Lacie 1:07:53
run into the planet. But during the winter.

Scott Benner 1:07:56
The point I'm trying to make is I understand penguins don't live in Canada and yeah, when I when I think of Canada, I think of penguins. Dudley do right? Beavers, bears moose, part of me believes you ride a moose. Like there's just I'm Oh no, I stay

Lacie 1:08:14
very far away from most things scare the crap out of me.

Scott Benner 1:08:17
No kidding. And then when you said you went to the Ukraine, do you have any idea how hard it was for me not to do a moose and squirrel impression in that moment. But I held it in. That's all. I wonder how many people are like moose and squirrel. What is this guy talk? I'm old. I know about cartoon cam bowling. Before people were born, I know stuff. I know useless stuff. And nothing about Canada. I'll go there one day. I know this is gonna happen. I know one day someone's gonna be like, come to Canada. Talk about it. I'm going to show up. I'll land on an airplane. I get out of the plane. I'll be like, this looks like everywhere else I've ever been.

Lacie 1:08:50
You live in New Jersey. That's just like a hop, skip and a jump away from us. Like it's very, very similar.

Scott Benner 1:08:57
I just know I'll like walk. I'll be so disappointed. One day I'll walk outside and like I won't be attacked by a bear. And I'll be like, god dammit. This is the same as everywhere else. No, that's what's gonna happen. Anyway, that's why I'm not going I don't want the illusion ruined.

Lacie 1:09:11
Oh, we're like a magical fantasy land to you. You can't you can't really see the reality.

Scott Benner 1:09:15
That's your policemen are riding on horses. In my mind in big red coats. I think it's lovely.

Lacie 1:09:21
I mean, they usually only do that to clear the drunks off King Street in Toronto.

Scott Benner 1:09:26
So those people do exist though. They do Yeah, they use the horses

Lacie 1:09:29
to they go like breast a breast across the street and just drive all the drunk people home

Scott Benner 1:09:36
there's that many drunk people

Lacie 1:09:38
on King Street in Toronto? Oh yes. King streets like the the entertainment district. There's a lot of bars on King Street.

Scott Benner 1:09:44
Well, listen, I wish you luck with the making the baby thing. I mean, you're fed up with this sex. You're like, it's enough already. Let's be done.

Lacie 1:09:56
Or you just gotta just gotta try different things that keeps it fun. Yeah,

Scott Benner 1:09:59
no, I know. You know, it'll take the fun away. Oh, baby. Yep. There's, there's no, there's nothing that so conflicts with itself as the process. Although your husband will look back on this time later and feel lucky about this that it took, like, I remember when we had Arden first time, she got pregnant the first time and I felt ripped off in a way that is difficult to put into words. It's just like, how could it have happened the first time

Unknown Speaker 1:10:30
process just completely cut short. And we didn't even do this was supposed to

Scott Benner 1:10:34
be fun. I might have put this in my book, but we did it like rushing out the door to go trick or treating with my son. Like, she was like, this is when we should start trying and I was like, okay, she's like, well, he's putting on his costume upstairs with your mom. This is so dirty. She's so we ran to the Arden was conceived in a basement. I just want to say that right now. And that's right, Arden, in case you didn't know. And you're like 30 years old, listen to this now. But you know, it wasn't a I wouldn't call it, you know, a loving moment. It's more of like, I think we can get

Lacie 1:11:08
this in your on a time schedule. Yeah, by the way, there was.

Scott Benner 1:11:11
There was no pun intended there. But I think we can get this in before we leave for this for the triggers and the readings. And then we did and then she was pregnant and like no time and I was like, Oh, come on. That was I don't know. All right. Well, I'm gonna let you go. You're probably sore.

Lacie 1:11:30
Yeah, I got to go do some stretches. Now.

Scott Benner 1:11:32
See, Canadian women have a great sense of humor. This one from the podcast, but I'm not kidding. By the way. I've totally learned this from the podcast. Not that other women don't but you guys are.

Lacie 1:11:43
Well, we're the butt of everyone's jokes. You kind of have to get a good sense of humor. Eventually.

Scott Benner 1:11:47
We Canadians.

Lacie 1:11:49
Have you have never watched a comedy special from any American comedian like Canadians are always that show.

Scott Benner 1:11:56
I mean, really, all we really know about you is that movie strange brew. There's nothing else. That's probably part of the problem. I mean, you sent us that Dave Coulier a guy you should have sent somebody better. I don't know what to tell you. I mean, I didn't mean

Lacie 1:12:09
we did send you Brendan Fraser at one point, which was he was pretty awesome

Scott Benner 1:12:14
for five seconds. And Alan Thicke was fine, but then he made that boy, now I'm stuck with him. Robin?

Lacie 1:12:21
Yeah, yeah, we try forget about that one.

Scott Benner 1:12:24
I am. I will say this before I go. I am endlessly fascinated that hockey is not more popular in America than it is such a good sport.

Lacie 1:12:34
It's great. But the problem is it's so bloody expensive to try and put your kids in it.

Scott Benner 1:12:39
Oh, playing it's tough baseball. Yeah, baseball similar here. You have to because it's not just something you can get. Just pick up a ball a ball and do it. You have to have a future mindset, a field and etc. And it makes it

Lacie 1:12:51
Yeah, I mean, I played baseball, softball, because apparently girls can play baseball in Canada. But it wasn't that expensive. Like all I had to bring was my glove my cleats. coaches were the ones who had to bring bags and bags of bats and everything else and

Scott Benner 1:13:07
hockey's the skates and the pads and the you have to have a ring

Lacie 1:13:10
and God forbid someone has a kid who wants to play goalie.

Scott Benner 1:13:14
All that stuff, too. Yeah. All right. Well, I guess you're I'm just telling you it's as a spectator sport goes. Hockey's amazing. Oh, hockey. It's great. But I don't know you guys are having trouble marketing it. And you put that handsome guy on that and see what you can figure out.

Lacie 1:13:29
Also, I think you guys have a harder time sitting in a cold arena.

Scott Benner 1:13:33
I'm cold was working out for a college one day baseball in the bathrooms were in the hockey rink next door. And just walking in the outskirts of it to the restroom. You needed a jacket. It was the middle of summer so cold in there. I mean, it makes sense. I'm not an idiot. Like, I know there's trying to keep ice frozen. But I can't imagine being a parent having to sit there. Like no matter what time of year it is, like bundled up to watch a hockey game, I guess.

Lacie 1:13:59
Yeah. So we're used to it. I mean, when it gets to be winter here doesn't matter where in the country you are, you're cold. So it's just like, oh, that's fine. But I imagine people living in you know, South Carolina might not be so interested in sitting in a freezing cold

Scott Benner 1:14:15
or making a point. Well, yes, no ball farmers are not bothered by the cold. That's for certain. No, they definitely aren't. That's all. Alright, but this was lovely. You're delightful. Thank you very much. Thank you. It's

Lacie 1:14:26
great talking to you. Yeah,

Scott Benner 1:14:27
I agree. It was great talk note is great talking to you too.

I'd like to thank Lacey for coming on the show today and sharing her story with us. And I also want to thank Dexcom, makers of the Dexcom G six continuous glucose monitor and Omni pod makers have the Omni pod dash and the Omni pod promise for being sponsors of the Juicebox Podcast. Don't forget to check them out at Omni pod.com forward slash juicebox and tech comm.com forward slash juice box. When you support the sponsors, you're supporting the show. If you're a US resident or the caretaker of a US resident, and you have type one diabetes, T one D exchange.org, forward slash juice box, take the survey, less than 10 minutes support people living with type one, and again, support the Juicebox Podcast. I want to thank you for listening today and remind you to subscribe and follow in an audio app. While I have your attention. Let me let you know about the Facebook page for the podcast completely free. But private Juicebox Podcast type one diabetes 20,000 members and growing people just like you looking for support community and maybe sometimes a virtual hug or a little bit of advice for another type one Juicebox Podcast, type one diabetes on Facebook. If you're enjoying the show, please go into that audio app that you're listening in and leave a fantastic five star review. It helps other people to find the show and to get started. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.


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#608 Diabetes Pro Tip: Honeymoon

Scott Benner

Scott and Jenny Smith, CDE share insights on type 1 diabetes care

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Amazon AlexaGoogle Play/Android - iHeart Radio -  Radio Public or their favorite podcast app.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 608 of the Juicebox Podcast.

Today I bring you the 25th installment of the diabetes Pro Tip series. On this episode Jenny Smith and I will discuss honeymooning. I know that a honeymoon can be very difficult to navigate both during it. And as it ends. It's difficult for parents of children with type one as well as newly diagnosed adults. So today, Jenny and I are going to do a deep dive on it. I think it's going to help you. Please remember, while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan are becoming bold with insulin. If you're looking for the rest of the Pro Tip series, it's available diabetes pro tip.com, juicebox podcast.com, where you can go right into your podcast app right now. Hit search and look for diabetes pro tip Juicebox Podcast, they should all pop right up. But there's great lists on the website.

If you're looking for community around type one diabetes, or diabetes in general, you should really check out the Facebook page for the Juicebox Podcast. It's called Juicebox Podcast, type one diabetes. All you have to do is search for it in your Facebook app, answer a couple of membership questions. And the next thing you know you'll be in there with like 20,000 people living with type one and type two diabetes. You can ask questions, make friends, use this space, any way that's best suited for you just lurk if you want. There's a lot to learn just by looking Juicebox Podcast, type one diabetes on Facebook. I know. I know what you're thinking Facebook, people are going to argue and complain it's going to be horrible. But this group really is special. There's not a lot of that going on in there. And I think you'll like it. Just give it a shot Juicebox Podcast, type one diabetes. Last thing before we get started. If you have type one diabetes, or you're the caregiver of someone who has type one diabetes, and you're a US resident, in less than 10 minutes, you can take a survey that will help people living with type one. It's AT T one D exchange.org. Forward slash juicebox. I've taken the survey myself, it really does just take a few minutes you can do it from your phone or your laptop or wherever is 100% HIPAA compliant and absolutely anonymous. It really does help people living with type one, give it a look. T one D exchange.org. Forward slash juicebox. Okay, so we're recording, I want to tell you that this lovely woman named Isabel has been helping me with the Facebook pitch. And she came to me recently and said, You need a pro tip for female hormones and you need a pro tip for the end of a honeymoon. She said these are things that people ask about constantly. And they must not feel like they're getting what they need out of the podcast on this. Now Jenny, you know, in my heart, the end of the honeymoon just means use more insulin. And when you get your period it means use more insulin but darn it, let's let's just dig into it and find out that the details Okay.

Jennifer Smith, CDE 3:47
Sure. Yes, they're both good. Good topics. Yeah,

Scott Benner 3:50
the details are apparently what is needed, and I am happy to deliver what is needed. And by that, I mean dig it out of your head and record it so people can hear it. Sure. Okay. Because my only experience with honeymooning that my only experience that I'm aware of personally with honeymooning because Arden had diabetes, you know, was diagnosed so long ago, and we had a little meter and some needles. I mean, I didn't really know what was happening in her. So the one thing that I can tell you is that I called my friend who was my children's pediatrician one day, and I I told you this before, but it fits in this this episode. So let's put it here. And I told him I preface my conversation by saying I know what I'm about to say is ridiculous. But is there any chance Arden doesn't have diabetes? And he said and he sounded sad. I think sad that I asked him and he's and he said why? And I said, Well, she hasn't needed insulin for about a day and a half now. Right? And that lasted maybe? I don't know. 72 hours. And then it was just going. Yeah, anyway, that's my entire personal experience with honeymooning but I know how difficult it can be for everybody. So,

Jennifer Smith, CDE 5:10
well, another good question. And that I mean, as you sort of began with, I just give more insulin right? Well, a good piece of honeymoon is or coming out of honeymoon, right? You're, you've kind of moved through that lack of insulin need or really, really, some people can get by on just Basal insulin. They might not need anything for their meals or their blood sugar's don't go high enough to correct or anything right. But did you notice also that after that, like, three ish days, that her insulin needs were higher than they were before that?

Scott Benner 5:48
Well, here's the here's the honest answer. I don't know. I didn't know. You don't remember. No, no, forget that. I don't remember. I didn't know what I was doing. Right. So like, I think that feeling maybe encapsulates more honeymooning and the and the leaving of honeymooning for people more than anything like, right. So somebody you or your child gets type one. It's a whirlwind. It's you know, and if you're honeymooning, insulin needs are changing kind of radically sometimes. So just when you maybe get the nerve to, I don't know, Bolus two units of a Basal, you know, and then the next day Your fight is 60, blood sugar all day that won't go up. And then the next day, you think, well, maybe I shouldn't use the two units of Basal and then you don't and then your body doesn't help that day and your blood sugar's 300. All day. That uncertainty, I think, is the main characteristic of honeymooning, don't you

Jennifer Smith, CDE 6:42
true and honeymoon is it is really different person to person, as well as the like, movement out of honeymooning is different person to person, like you didn't have art and didn't have a very long honeymoon at all. And that's not uncommon from the studies that have been done. It's not uncommon with kids under the age of five who are diagnosed, to have a much more rapid rapid onset of type one very quick, very aggressive, really high blood sugars, you know, unless they've been watching for it, or they know because of previous antibody testing that it could be coming, you know, DKA, all of those kinds of things. And what that results in is causing enough of the betas to be stressed enough and the body kind of decreasing them enough in, you know, in amount that now diabetes presents itself, okay? So but in older kids, and especially in adults, there is often a slower progression of type one, like, you know, here it is, yeah, and all those symptoms, and that often leaves more betas in the picture. Also, what's been found is that the sooner you get containment of blood sugars after diagnosis, you give some relief to those beta cells. And because now, you know, you're either injecting or you're pumping insulin. And so that's something that's helping to take care of the blood sugar levels. And your betas that do remain can actually help out and so honeymoon then often comes in, you know, where, usually somewhere between about one to four months post diagnosis is the typical like, honeymoon, time to expect that to come into the picture and how long it can last again as person to person, it could be a couple months, it could be three days, it could be a year or two that you continue to have this like lack of more typical insulin need.

Scott Benner 8:54
It's the consistency that you're that you're missing and, and yeah, that breaks people's hearts I think I'll tell you after interviewing so many people, I've heard, I believe every variation of time and distance about honeymooning from adults and children and crazy stories where blood sugars are suddenly super normal super out of whack. One lady I'll never forget told me like she thinks her honeymoon lasted years. And then I'm wondering like, is that? Is that honeymoon? Or is it a slow onset? Like is that like, and I guess it doesn't really matter, right? Like, what matters is that you're using insulin now. And in there's going to be this variability to how much until things I guess you could just say settle but obviously it's not settle. It's until your beta cells give up. Right right completely. Do do some people just not see a honeymoon at all. What does that mean? And they're not aware of it. In talking

Jennifer Smith, CDE 9:53
with so many people that I have, and you know, it's always something I asked about his diagnosis. If somebody wants to talk about it, you know, or if it's been very, very soon after I get to talk or, you know, before I get to talk to them, it's been very close to that time period. And it seems like, again, everybody is a little bit different. A little people again, very little people tend to be the ones that I hear the most, we didn't notice very much honeymoon, or, you know, parents are concerned, because they're like, I don't know, I feel like we never had a honeymoon, I feel like, we never needed just like a little bit of insulin, we just went from not using any really using insulin, you know.

Scott Benner 10:37
So functionally, how do people deal with it? So when, you know, let's say, I came to you and I said, Hey, here's my seven year old kid, yesterday, this Basal, and this meal ratio worked perfectly. Today, it's a hot mess. And I'm saving low blood sugars all over the place. I don't know what's gonna happen tomorrow. But as I look back, this is bouncing around. It's two days of this one day of that. But how do you find reasonable stability until things get normalized?

Jennifer Smith, CDE 11:12
Well, some of it again, in that early time period is it's a bit of estimation, you can base it on Well, yesterday was a really sensitive day, if it looks like we fought low blood sugars all night. And we're entering morning time again, today, with lower blood sugar's yet again, that's a good visual that maybe today needs to be covered similar to yesterday, or even less aggressively than yesterday, right. So some high insight can help. But then, you know, tomorrow morning, you wake up high. If you didn't do anything strange overnight, and you're all of a sudden, high, today might be one of those days that you're going to need more insulin. And so it, it's hard because it takes out of the picture, a lot of the things that we've done. In other we've discussed in other episodes, like testing, right, and doing things like Basal testing, in this time period, it's kind of hard, because you don't really know exactly day to day, how things are going to move overall, the general idea that kids before puberty, once remission, has kind of gone away, right? Once that honeymoon period, you're expecting it's over. Insulin needs usually are about point seven to one unit per kilogram per day of insulin.

Scott Benner 12:34
Say it again,

Jennifer Smith, CDE 12:36
point seven to one unit per kilogram per day of insulin. So and if you don't know, pound two kilogram conversion, just take your pound weight and divide it by 2.2. And you'll have your weight in kilograms. But that's a it's a, it's a baseline, you know, if you were really, really, really low to begin with, and now you're doing a really low carb diet as well. You may not really see that insulin dosing kind of go along with what we would expect in terms of overall insulin need, right? Usually, people are considered in remission, if they're at, you know, point five or less point five units per kilogram per day or less of insulin. And then, you know, once you get to puberty, gosh, I mean, you could use anywhere between a unit to two units of insulin a day during puberty, and that's completely normal. Absolutely, and completely normal. So if you're not so sensitive anymore, you definitely see these swings in blood sugar, you know, especially in that growth period overnight or in the aftermath of meals and is lasting and lasting and lasting. guarantee you're probably not in honeymoon anymore.

Scott Benner 13:50
Well, you know, you I've said it to you have said to everybody listening, you have to meet the need. And I don't know, it's clear enough about that. But if one day the need is greater than meet the greater need and if one day the the need is lesser than meet the lesser need and, and flexibilities just it's completely key. It's what you're saying. It's like you have to sort of I don't think that I don't think that during honeymoon you want to look real macro. Not all the time, right? You want to kind of just deal with diabetes and segments of it of half days or hours or something like that. Like here's what's happening right now. If it starts trending one way, then adjust with it if it starts trending the other way then adjust with it. But I don't think there's a lot of value unless you're matching an apples to apples day and going well last Thursday. You know she was really low so I don't want to be aggressive six days later. You don't I mean like today's got no no Yeah, yeah, there's no correlation between now six days ago when you're in this honeymoon fluctuation. And I know that people We're gonna think I'm flipping but I think you could just retitle this episode, diabetes pro tip ministration. And I don't know that we're gonna say too many different things when we get to it, which is why maybe for some people, they gloss over it when we talk about these basic ideas of like, it's not always going to be the same all the time, you can't always ask for a cut and dry answer. I mean, if you want to get through a honeymoon period, and it's, it's particularly, you know, Rocky, I think that just staying flexible, meeting the need, you know, taking a little bit of historical knowledge off of days that were similar to the one you're experiencing now. I think that's really the whole thing.

Jennifer Smith, CDE 15:45
I think that's the best that you can do oftentimes, especially in honeymoon, and then even, you know, coming out of honeymoon, there's, I know, some people use the word like it becomes more stable. Okay. Sure. More stable in the fact that you're not like giving only one unit and that whole talk takes care of your whole day. Yeah, yes, absolutely.

Scott Benner 16:12
But yeah, or that one day, the units necessary. And then the next day, it's not necessary. But there's,

Jennifer Smith, CDE 16:19
I think there's more consistency is, is it exactly and I mean, in honeymoon, again, there are ups their downs, yes, you can, you can choose to use insulin from some hindsight from, again, I know, on a really, really busy day like this, my child needs a lot less insulin, but is running high today. Okay. Again, it's the then meet the need in terms of where the blood sugar is right now. And thankfully, these days, I mean, you didn't have an I certainly didn't, as a kid have any visible to where my blood sugar was going at all. It was a one number, it could be rising in 10 minutes, it could be dropping in 10 minutes. And that's what

Scott Benner 17:03
it was. I wonder sometimes when I'm like, I'm speaking to this person, now, who's got a very small child who I think still their needs are, well, they're not honeymooning, they were just, they had too much Basal going. So it's, you know, by using too much Basal, they were getting drops, that didn't seem to make sense, right. And so it took a day or two to figure out that the Basal was too high, to bring it down a little bit. But in there, while we were trying to figure it out, this person was using pens. And so they were relegated to point five units at a time, right, and I just said you have syringes, and she did was like, just eyeball less than a half. Next time we go for this meal, and did that and fixed a lot of their problems. So while this kind of unseen force, obviously, I'm talking about Basal that we needed to fix though, but you know, let the unseen force be, you know, your pancreas working all of a sudden, was dropping or down? If the limiting factor was the was the measurement on this on the pen. And then you like, for some reason, your brain doesn't jump over that and go, Well, this might be too much. But your brain says this is all I'm able to do. Do you know, I mean, like, and so but the minute we dropped down to like these quarter of units, then suddenly, there was far fewer spikes in the meals, and then far fewer lows afterwards. And I'm just wondering, like, during the honeymoon period? If you are that scared of these crazy drops? Do you maybe just draw back your Basal a little bit? And then on days when that Basal is not enough, just increase your meal insulin a little? Or do you mean like, because also these these poor people are probably MDI in this moment?

Jennifer Smith, CDE 18:55
Correct. Most often, and like you said, unless they have, you know, half half unit dosed or marked syringes in which yes, if you've got to, to get good eyes, or you have a good magnifying glass, you can get kind of a quarter unit fish in there, whatever it might be. They've got a good friend that does just that, and she's done it for a long time, and it works great for her. But again, you have to kind of use those microscopic doses and on pens, it's a hard thing to definitely do because all you can get is a half a unit. I mean, I think on pumps, honestly in honeymoon and I know a lot of clinics often don't encourage people to start pumping until honeymoon is expected to be almost over. And I sometimes I agree with that. Sometimes I don't agree with that. I think it kind of is individual in need. You have to look at what people are able to do and kind of a knowledge base of where are you already but those doses they do, they do shift and change through honeymoon. And then, you know, going out of honeymoon, you can expect the doses to definitely increase your child, your TN, your, you know, adult that you're living with or your partner to or whatever you're going to expect that their doses are going to increase. And while kids are growing at the same time as coming out of honeymoon, there are a lot of factors there. Another piece in the mix that often shifts things to higher insulin, and we've talked about it before we talked about illness and management is that if a child is also sick, within honeymooning and is now requiring more insulin, then by the end of the illness, they may actually either leave honeymoon sooner, or they may just be still at a higher insulin need as during the illness, the pancreatic beta cells were trying to assist, and there aren't very many of them left. So they were getting stressed out and can all can leave less than Yeah. So

Scott Benner 21:07
that's interesting. Yeah, I think that. So I think that the next step here, I mean, besides telling people like, look, it's gonna happen, you know, if it's happening, it's flexibility is key, it's going to be a little more stressful, but only if you I guess, only if you're looking macro when you should be looking micro. And then vice versa. Like you just talked about a lot, a number of ideas where you do want to pull back and see the big picture, but not about the fluctuations day to day those you kind of got to get on like a bowl and ride them, you can't step back and have an existential conversation about whether or not you should be bull riding, you know, so. But but the other stuff, are there illnesses, is there growth, you know, activity, those things are, those are big picture items. So now, okay, so now you've figured out a way to ride through this honeymoon, the thing that I see from people over and over again, is that when it ends, you know, like when the honeymoons over, they can't believe it. They can't pull the trigger. They can't ramp up. Think about it any way you want to. But they get stuck in the game, and don't recognize that the game changed.

Jennifer Smith, CDE 22:23
Yeah, I think the big thing there is that, especially in honeymoon, the sensitivity to insulin makes people very wary of using more. Right, right, because you can get burned, right, by using more thinking you needed more, because yesterday, it clearly didn't work with this, you know, lunch that we provided we're giving the same lunch today. So I'm going to be more aggressive, you know, gave a quarter unit yesterday, today, I'm definitely giving a half a unit and then on the back end of the drop happens, right? The good thing to know is that in, you know, the coming out of honeymoon kind of moving out of that that phase is that you will have again, more consistency in more need for insulin, you won't have as much potential for those drops, where you learned they typically happened even if it wasn't every day, you probably got a good idea of where things needed to be lower in dose or, you know, that won't necessarily be the case. Once you're out of honeymoon,

Scott Benner 23:36
I feel like you I mean, when I tell people about it, I say you just kind of have to reset at that moment. That's when you go back to the setting Basal insulin pro tip, you start over again, you get the Basal straight, you reevaluate how long your Pre-Bolus time is, you reevaluate your meal insulin after you've re evaluated your Basal insulin. And you just kind of start over that. The truth is, is that I think that the transition from honeymoon to out of honeymoon is not actually much different sometimes than the transition from MDI, to pumping in that it's just the it's the same game different players, like I don't know how to like, how to think of it, it's like, you know, right church, wrong, pew. I don't know what the what the the thing is, like you're doing the same thing. But the pieces have all just sort of adjusted a little bit. And you have to just step back, take what you know about the thing you've been doing, and reapply it to the new situation.

Jennifer Smith, CDE 24:31
Right? Correct. And with pumping, you know that you've got a lot more precision that comes along with that. So if you've been doing things as precisely as possible with let's say, Just half units, right, and Basal that's given once or maybe twice a day. Now you can really address where insulin needs are heavier and are lighter through the course of a 24 hour days. Yeah, you can meet the need more precisely, thus, the benefit of doing some Basal testing again, even if you're just doing it overnight, and everybody wants to sleep. So if there's one time a day that you're going to do it, do it overnight,

Scott Benner 25:14
get that part done, get that part done. And you steal a bunch of a one C and some just good feelings. In general, if you're, if you're thinking all 24 hours are just a train wreck, like maybe you can at least get eight or nine of them straight, you know, and say, and it's a jumping off point, figure out the rest of the day. I think that when you were saying something a minute ago, this thought just jumped into my head, and I'm gonna put it here. And I think it fits. I think no matter the situation, maybe I'm talking about just diabetes or life in general. But do something is often the answer. People, there's a people freeze, wondering what the something should be. But if you're watching the same thing happen over and over and over again, if you just change the variables, the stressors on the situation, you might see something new, that helps you understand a bigger picture something different. And so, you know, if blood sugars are, I mean, I don't think it's a joke. But like online, sometimes somebody will throw up a graph and be like, I don't know what's wrong with this. And I'll literally just type more insulin. Because put in some more and watch what happens and then go Oh, cause and effect if they want to know where

Jennifer Smith, CDE 26:29
Right, yeah, not just more like, but where should I put that more insult

Scott Benner 26:35
thing, though, it's like do something right? Like, if you haven't been on vacation in 15 years, take $5 a week and put it in an envelope, you know, do something, try to change the situation a little bit. And I get that it's frightening. And I used to think, Jenny, I used to think that all these things that I saw around diabetes, were so specific to diabetes, but I've been having some personal things going on with my mom's health recently, which Jenny knows about? Probably not. Yeah, about right away. But but the point is, is that I recognize that the confusion, and the the lack of knowing when to jump and feeling like you're overwhelmed and feeling like you don't understand what to do next. It's life, not diabetes, right. And maybe it feels a little more dire in some situations than others. You know what I mean? Like standing in the store, trying to decide between two waxes for your car might not be as crazy as I wonder if I want to add three more Basal units to my kid or something like that. But the truth is, is that that inaction, that's what keeps you where you're at. So if you're sitting where you don't want to be, do something,

Jennifer Smith, CDE 27:47
right, and easier one to honestly do, let's say you are running high, you know, all day long, and you're higher after meals, but you're still just stuck high in that scenario, and a safer thing is just add a little bit more Basal add just a little bit more Basal, right. If instead, in time periods where you're not actually eating, it doesn't look too bad. And then you've got these big excursions after you eat just about, you know, anything, even a microscopic eight grams of carb, maybe and it goes rocketing up, well, then you may be okay with Basal and maybe the next place to add more. And again, not three units more, but maybe add a half a unit or adjust your insulin to carb ratio by one gram to get a little bit more insulin around the times that you see the change that you don't want to see happening.

Scott Benner 28:45
Yeah. Arden's been getting up in the morning going to school, and her blood sugar has been rising. This this school year, like 30 points in the morning. I tried to let the algorithm mess with it didn't work. I tried making just some simple Basal adjustments wasn't enough. And then finally I just said doors like when you leave the house from now on, we just Bolus three units, please. And she's like, what I was like, just throw in three units, get the car, go to school. I was like, because whatever's happening is happening enough. I believe it's happening. I trust that what I know is going to happen is going to happen. And she's using an algorithm. So if you make an uncovered Bolus, it removes her Basal immediately. So her Basal is like 1.2 in the morning. So I figured it was about a unit and a half or so to fix the number or to get ahead of the number. And we got to cover the Basal that's gone. So it's like just three. And then we adjusted off of that and did a little too much the next day we did a little less. The next day, we had a better outcome. The next day she forgot to do it, you know, on the third day and I was like see it happened again, like you know, like do this thing that made her trust the drive Do it and it becomes a little more important to her. I just think it's another example of do something. Right. You know, I, I've been saying online a lot to people lately. And you'll forgive me because I can't pronounce it in its in its origin language in Latin, but I've been telling people lately, Fortune favors the bold. Just try something, you know, they mean stand up thump your chest and go, I'm gonna take a swing here. Let's see what happens. And then you get back to this stuff you hear in the earlier pro tips, you know?

Jennifer Smith, CDE 30:35
Right. Well, and I think the bigger thing too, that you're, you're bringing in is try something, right? But then analyze what that trying did. Right? Don't just try it and be like, Wow, that clearly didn't work. Like, still focus on it? Well, it didn't work, your adjustment either left you to higher like, you know happened for you caused it to be a little bit too low in the algorithm couldn't really save you from that extra insulin well, but now, you know, so you use that for that information. And you move forward and you say, Okay, tomorrow, we're going to do it this way. I mean, that goes into, you know, a lot of things in terms of kind of the exiting of the honeymoon. It does it's try this, it looks like consistently in the past week, he's needed more insulin, right? Okay, great. You're trying to add more insulin? Is it enough? Is it getting to you to the place that you want to be? Insulin needs may actually continued to climb a little bit. It's not like a night and day like yesterday, we needed one unit and tomorrow, we're gonna need 10 units. That's not typically the exit of honeymoon. But over time, that lack of beta cells that is that was helping you write is going to show up very evidently, in that you don't return to that minimal amount of insulin,

Scott Benner 31:57
when you know what made me do this episode when Isabel told me that she thought it was necessary. It was that I had to get over that thing in my head that it's already in the podcast. Like I was like, No, it's in there already. You just have to listen to it. And then I thought, well, it's in there. But it's in a different way. Because what we just talked about, what about that? It really is the way when I'm when I was talking about God, I don't even know what episode it was not that I guess maybe that's a good point. It's hard to find them all. But But, but when I was talking about like sometimes you know, people's meal insulin right meal ratio, sometimes their insulin to carb ratio can be like spot on for a number of meals, but not work for a certain meal. And I always use that silly example, if you have meatloaf and mashed potatoes and green beans, and you count the carbs. And it says the carbs say Oh, this is five units, you make your Pre-Bolus. You spike, you end up correcting later with two units, which brings you down and you don't get low. Well, the next time you have the meatloaf in the mashed potato, seven units, you use you seven units, right? Like you see it happen. And then you take the leap, you stop looking back at the meal ration going no, that's not right, I counted the carbs, it's right, this is five units, very similarly to the idea of you're using a pen that only goes up to a half a unit and you keep using it and then watching a low blood sugar happen. I go, I'm powerless, but you're not powerless. Like you just need to go get a syringe and do it a different way. And you're not at the mercy of your carb ratio just because it works five days a week, but not on Sunday when you have meatloaf like right. So, right. It's all kind of the same idea. Like right, I know it sounds trite. But

Jennifer Smith, CDE 33:37
well, and that's I think it brings in a good a good piece too, in terms of, you know, multiple daily injections, then we move to pumping, and then we move to the fancy features of pumping. And then you might move to an algorithm driven pump, right? All of these things take. They take like evaluation. And a good example from somebody I worked with a while ago, who had started using one of the algorithm driven pumps, and she was fantastic. I love it. It's working so awesome. But it doesn't work on Friday night. I was like, Okay, well what were you doing on Friday night, that this doesn't work anymore for you. And she had this like, whole thing figured out for her dinner Friday nights that she would go out to with her husband. And on a conventional pump. She could use like, you know, a temporary Basal she could use an extended Bolus and she had it down, Pat, that was like just go to manual mode in your pump and use it that way overnight and Saturday morning. Turn your algorithm back on. She's like, why didn't I think of like, oh, I don't know either, but I hope that it helps and it it seemed to be much better than we did

Scott Benner 34:53
last night. Yeah. Because we went to a bar and art and got nachos with cheese steak on top of it and had French fries, and I crushed my first Bolus. I was like, I haven't been this excited about a Bolus and was like I was on top of it. And then I started seeing the fat rise, and we hit it again. And I was like I was over. And then I go upstairs to start working. And suddenly she jumps up her blood sugar jumps out, but I go downstairs to my lab and see what happened. I had some gummy bears, she told me and I was like, no, no, we can't put simple sugar on top of fat and protein. I was like, are you all out of your minds? Without like, significant I said, Aren't you were going to gummi bears in this situation, the Pre-Bolus would have needed to be causing a fall before you put the bear the bears in, you know. And then that would have been okay, but she just did the like my blood sugar's great thing, threw in some insulin, wait a little while and ate it. And it was not nearly enough. We needed to be more drastic with it. And so I was like, so my text, my text said this, I'll bleep it out. It said it said that it said, open the loop Bolus for you.

Jennifer Smith, CDE 36:06
And let and let the Basal run let's

Scott Benner 36:09
back to normal pumping for a minute and stop asking this algorithm do something that it doesn't know how to do. Because it's

Jennifer Smith, CDE 36:15
not it's not a learning algorithm. Unfortunately, it doesn't, you know, it doesn't react the way that we have the experience to say, I know this is what's going to happen. Please don't fiddle with the insulin that I put in purpose.

Scott Benner 36:32
Now's not the time to take the Basal away algorithm. Yes, gummy bears and cheese stick nachos happening right now. Anyway, Jenny, you know, there was in the past, there was a moment when I, I used to worry. And I think like, Well, we've already said these things. And people will find it. And now I realized that that's not how this is going to work that these continuing conversations are incredibly important. I think maybe the conversational part of this episode, and many episodes is more important even than the technical aspects of what was said inside of it. Right? You know, like, if you listen to the Pro Tip series, and you had your brain or my brain, or your experience, in my experience, you could derive from the Pro Tip series how to manage a honeymoon. But for people who are in that situation, I think they need the information here. Right, you know, in one spot. Yeah. And I just, I don't know if I was just like, super hopeful or lazy. I'm not sure. But I used to think like, just go listen to the pro tip episodes, it explains the whole thing, you know, and it really does. So I appreciate this, I think we're gonna have to, you know, like I said, I want to do one for you know, female hormones, menstruation, that kind of thing. Yeah, specific the next time we record. And then from there, I'm going to say this year, Jenny, because it will put us both on the hook. In 2022. Jenny and I are going to go back to certain pro tip episodes, were going to re listen to them on our time. And then incorporate questions that I'm collecting on Facebook, on how to supercharge those episodes. So they're going to kind of create some of them are going to get a part to kind of a situation. That's cool. That's what that's how we will you and I will spend our time seeing each other through the winter of 2022 sequels to certain episodes. I'm thinking of them as director's cuts for oh, there you go. Yeah, for older people who you remember the directors commentaries? Yes. Yeah. You know, where do you mean you'll flip the movie on and the audio goes away, and you just hear the guy go. In this shot. What I was thinking was that if the sun came in from the left,

Jennifer Smith, CDE 38:41
and we could could pan over here and listen to this music from this producer, you know, whatever. See

Scott Benner 38:47
how missoma Hykes eyes are glistening. i I told the DP like I don't know if you ever listened to them. They're pompous exchanges, Jenny and I will not do that. But we're gonna go back and listen to what we've said. Because I've done it a couple of times, like in Episode 500. I went back to Episode 11. That's bold with insulin. And I listened to it and like talked overtop of it like so people listening and episode. I think it's 100 Oh my god. 100 500. Sorry. In episode 100. I just basically did a director's cut of that, because I realized that when I said it, I was just saying it. Like there was and now I've lived all this time since then, and had these interactions with people that maybe there'd be more to add to that. And I think that exists for the Pro Tip series. Like and I'm excited. I'm sorry that you're gonna start getting emails from me that say please listen to this one before we talk again. But

Jennifer Smith, CDE 39:36
no, that's fine. You're busy and I can do it during my workouts. That's not usually I just That's my mental like, my moving like mental sort of like strategizing time is my exercise time. I am not like a sit in one space and like meditate. I'm a moving meditator But I can meditate on the episodes so we can make them better for everybody else. Excellent.

Scott Benner 40:04
I have a question, then I'll let you go. How do you make out listening to your own voice? Does it freak you out?

Jennifer Smith, CDE 40:12
It's I don't know, it's I guess it's kind of weird to me because I like I hear myself speak, you know, in your brain like, but when you hear yourself, it sounds different. I guess. I don't mind listening to myself. But yeah, I don't know. I don't think that I sound like what I sound like when I listen.

Scott Benner 40:35
No, no, no, I sound so right now we're recording, I can hear you and me and my headphones. I sound different in my headphones than I sound on the recording. And if I'm just speaking out into the world, I don't think I sound like the person on the podcast at all, but people think I do. But in my ear, it doesn't sound the same. Although And do you ever get on you ever? You ever say anything and hear yourself and go? Oh, Jenny, you should not have said it. You should have said it like this? Do you ever correct yourself?

Jennifer Smith, CDE 41:01
I do? Absolutely. And a lot of the ones that I've listened to don't like, oh, this would have been a better explanation. Or I could have put this in as an example. And that would have been better. So maybe we Yes, I think it's great to sort of rethink them. Because then we can add extra and

Scott Benner 41:15
I agree that there's there's just always going to be other stuff to say. And as we move forward into 2022, and beyond more people are going to be using algorithms. And there's going to be a whole new layer of understanding for diabetes, there's going to be things that you and I don't have an experience yet that, that through these experiences over and over again of using this technology, you're gonna come out I don't see an end to this podcast, I used to think it was finite. And now I think somebody is gonna need to, you know, make up a cure for this podcast not to be necessary.

Jennifer Smith, CDE 41:47
So Well, that's what I was gonna say I don't think until there's honestly a true like, you don't have to use any technology or anything. You just go in and get your bloodwork done and make sure your doctors like yep, you still look great. It's all perfect. I don't think you know the information that people need, especially with life changing and everything. I think it's purposeful. So

Scott Benner 42:10
I do too. I appreciate you doing this with me. It's the end of the year. So let me thank you for giving your time so greatly to the podcast.

A huge thanks to Jennifer Smith, my good friend for being on this episode of The Juicebox Podcast. Actually, Jenny does the podcast for fun, but she also does this stuff for a living. So if you'd like to hire her, you can at integrated diabetes.com After the music. I'll give you some agenda specifics. Don't forget the Facebook page for the podcast Juicebox Podcast, type one diabetes 20,000 people strong, just like you looking for advice, community and support from people who understand. Please take advantage of it. It's absolutely free, and really valuable.

My friend Jenny Smith has had type one diabetes for over 33 years. She holds a bachelor's degree in Human Nutrition and biology from the University of Wisconsin. She's a registered and licensed dietitian and certified diabetes educator and a certified trainer and most makes and models of insulin pumps and continuous glucose monitoring systems. She is also on every one of the diabetes pro tip and defining diabetes episodes. You can find those episodes in your podcast player. We're at Juicebox Podcast comm I actually think there's a list on the Facebook page to up in the Announcements section. Is that what they're calling it now that used to call it all a sudden? I'll find out for you. And then I'm going to tell you about the other stuff that you need to know. Yeah, so if you're on the private Facebook group, they call it featured now used to be announcements now it's featured. So if you go to the featured section, you'll find lists of the pro tips how to start listening to the podcast, defining diabetes, all kinds of stuff that you need. Actually, there's lists of ask Scott and Jenny episodes here. All kinds of good stuff. You should check it out. Look at there's so much to choose from special episodes after dark how we eat okay, I'm not going to bore you with this. But by the way, it's not boring. I'm just trying to fill you in. Are you arguing? am I arguing with nobody? Hold on a second. I want to tell you about the diabetes pro tips. So they began back on episode 210. With an episode called newly diagnosed or starting over, I'm going to try to list them for you pretty quickly. Episode 211 all about MDI episode 212 all about insulin episode 217 Pre-Bolus Episode 218 Temp Basal 219 Insulin pumping to 24 mastering a CGM to 25 Bumping nuts To 26 the perfect Bolus to 31 variables to 37 setting Basal insulin 256 exercise to 263 fat and protein 287 illness injury and surgery 301 glucagon and low V Gs 307 Emergency Room protocols 311 long term health 350 Bump and nudge part two 360 for pregnancy 371 explaining type one that's for other people like so you can share it with like a family member, a loved one who needs to understand type one 449 postpartum 470 weight loss and this episode 608 And there's going to be more in fact, there'll be another one next month on female hormones. Thank you so much for listening. If this is your first episode, please subscribe or follow in an audio app of your choosing. Apple podcasts, Spotify, Amazon music anywhere you get audio. I'll be back very soon with another episode of The Juicebox Podcast.


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#607 The Famous Mister Ed

Scott Benner

Ed is an adult living with type 1 diabetes.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 607 of the Juicebox Podcast.

On this episode of The Juicebox Podcast, I'll be speaking with Ed, who is an adult type one. He's also a parent, husband, and a number of other things that we get into. He said a lot of things as a lot of things. And he's a person like you like me just trying to get by. I'm just kidding. Ed's great. We're gonna have a good time. Please remember while you're listening, that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin.

Just now, I realized I could have named the episode Mr. Ed. I still could I guess. The amazing Mr. Ed. Is that how the horse is a horse? Of course, of course. The Baba, I can't think it is on Mr. Ed. Song. Unless the horse is the famous Mr. At the famous Mr. Ed, should I call it that? I don't know. We'll see.

This episode of The Juicebox Podcast is sponsored by the Contour Next One blood glucose meter. You can learn more about that wonderful little meter at contour next one.com. Forward slash Juicebox. Podcast is also sponsored by touched by type one. And they're of course available to you for your viewing and reading and looking pleasure on Instagram, Facebook, and it touched by type one.org.

Ed 2:03
My name is Ed. I'm 48 years old. I've been a type one diabetic since 2000. So with that being said, Scott, now you have to figure out how old I was when I got it. Wait, I do. I was going to how you look. I know how you love doing math. Well,

Scott Benner 2:18
I went the easy way. And I was like you've had it for 21 years. It's easy that way. What did you say? How old were you when you're diagnosed?

Ed 2:28
I was just about to turn 28.

Scott Benner 2:32
You're 49?

Ed 2:33
I'm about to turn 49 September 1.

Scott Benner 2:37
All right. Okay. See? You gave it away. You were 2728

Ed 2:42
Yeah, it's 21 years.

Scott Benner 2:44
So you've been on it that long.

Ed 2:47
Yeah. And for the first 1718 years. It was okay. I'm not gonna say it was great. Wasn't a great diabetic, but I wasn't a bad diabetic. I tried to eat okay. But my problem was I never tested myself as much as I should have and and without a CGM that I have now not having any idea of what my blood sugar was in between meals, or through the night or anything like that. So it's been much better now for the last three years for sure.

Scott Benner 3:18
So let's put this into context. Because my no messing around, throws me off. So in 2000 year, how old

Ed 3:25
I am about to turn 28 I just started a new job had just started a new job yet, and moved back to New York from Texas where I was working in another job and I flew back to New York for another job.

Scott Benner 3:38
And your accent must have stuck out in Texas like a sore thumb, huh?

Ed 3:41
A little bit. Sure.

Scott Benner 3:46
Okay, so 2020 years old. The technology I mean, the testing technology exists then.

Ed 3:55
Yeah, I mean, we had a mere it was like the first meter I got it was, like 30 seconds to get the reading. Which is I mean, we just sitting there 30 seconds seems like a long time we just waiting for the you know, countdown 28.76 And then then the fight you find out your number.

Scott Benner 4:13
And you had I'm sorry, I mean to cut you off, but you probably had a you probably had homolog or something at that point, right?

Ed 4:19
Yes. I was on obviously MBI for the first six months or so using human log and Cuba when human Okay, which I think is just like a long acting one

Scott Benner 4:29
right. Now, you said you did this thing that that a lot of adults that have had type one for a while do it's super interesting. Me. You were like it was going okay. Like I don't know what that means.

Ed 4:41
Yeah. It was going okay. I don't know how else to say I mean, I wasn't I wasn't having many, many lows for sure. You know, but I was probably running higher than you'd want to. You'd want it to be, but especially if I was looking at my numbers now and back then I'd be like, What the hell was I doing?

Scott Benner 4:59
Well, So that's what I usually think of right is when they when when you guys say when you guys have now lumped together everyone has had diabetes for like 15 or 20 bucks. We're all just one group. Yeah, I don't mean it that way. But but the people, the people I've spoken to when they say that I feel like what they mean is, I didn't get dizzy and I didn't pass out. Right? Is that how you felt about it?

Ed 5:24
I yeah, I guess I mean, at the time, I wasn't, I didn't want to say I didn't take it seriously. But I wasn't taking it too seriously. I knew what I had to do. I took my shots when I had to, I tried to watch what I ate. And I just tried to live as normal as I could, I didn't really try to let it you know, hold me back from doing anything.

Scott Benner 5:44
Right. I that's the other thing that people love to say is like, diabetes doesn't hold me back. And I always think of, like, when you say that to me, if you said to me, Hey, Scott, I see that diabetes doesn't hold Arden back in my mind that paints a picture of somebody with really stable blood sugars, who doesn't get low when they're active, and can do things on a whim, you know, can stand up and say, I'm gonna go out now, and it's not a big deal. And I have had the feeling over the years to talking to adults who have had type one for a long time that when they say didn't hold me back, what they meant was, is I just did stuff. It didn't matter what my blood sugar was. Correct? Right.

Ed 6:24
I'd say that's a fair statement. Is

Scott Benner 6:26
it okay for you? And obviously, I'm not lumping everybody together. But for me, yeah,

Ed 6:29
yes. There was never a time. Where is it? Oh, wait, I can't do that. I gotta take a toll of something real quick. Never.

Scott Benner 6:36
But in context, it means if your blood sugar was 250, you would have just gone out to dinner anyway. Yep. And then your mind. diabetes wasn't holding you back.

Ed 6:45
Right? Yeah. And if I was a 250, and I was allowed to eat all right, let me just give myself a correction. Oh, at the time, and just go, and then probably wouldn't test myself again until hours after dinner or before bed.

Scott Benner 6:58
See, you're you're you're cementing my, my thought that diabetes doesn't hold me back means I'm just not going to pay attention. I

Ed 7:07
know. Well, I guess I guess, I guess I was never really that bad. Right? I mean, my, my agency has always fluctuated between mid to high sixes and a top out of being the highest 8.2.

Scott Benner 7:22
So for me, it's context, right? And I shouldn't joke around because I don't want anybody to take it the wrong way. But back then, or even 10 years or 20 years prior to that everybody's experience with diabetes is different based on the timeline. Like, sure, you really weren't being held back and you were doing the things that you were asked to do. But now in hindsight, the way you manage now, you can look back and think, oh, wow, like, that's not nearly what it could have been.

Ed 7:50
Exactly. And I wonder about did I cause myself any damage?

Scott Benner 7:53
I would imagine you think about that. Yeah. But you know, but I mean, I don't

Ed 7:57
I still have, you know, I saw all the feelings in my feet and stuff like that, you know, the doctors always try to test that. I don't have I don't I don't have any other ailments that I would think that would have been caused by any damage I might have done to myself, right.

Scott Benner 8:13
But even as I'm saying what I just said, like you recognize to like you were probably doing as well as you could have done with the technology that existed at that point.

Ed 8:21
Yes. I mean, I could probably test it a little bit more often. Okay. But but at the time, all I had was a meter. And at the time, my Medtronic pump,

Scott Benner 8:32
Was it really that much of a hassle to test?

Ed 8:36
I'm a lazy guy, Scott. When it comes to stuff like that, when it comes to stuff like that, I mean, you know, but

Scott Benner 8:43
in the moment, do you not connect testing more with living longer and being healthy? No, I say,

Ed 8:50
I just was just doing something. And then oh, I got to eat. Maybe I shouldn't. And then a next meeting, and I didn't even test myself.

Scott Benner 8:58
I gotcha. It because when I think about it with Arden prior to CGM, we tested frequently, I'd say. I'd say honestly, we might have tested Arden between 10 and 14 times a day before CGM, like I was trying to act like a CGM before I even knew what one was. Right?

Ed 9:15
Well, and good. That's being a good parent.

Scott Benner 9:18
Well, your well is I was definitely just scared. Oh, for sure.

Ed 9:22
And I'm sure you've said it a lot. And a lot of people, a lot of people we've interviewed said the same thing. I was glad I got it as an adult. It's my parents wouldn't have to take care of me.

Scott Benner 9:33
Yeah, I can see that. I've also heard people say that listening to the podcast as an adult with type one makes them wish that things were like this now. So their parents, I think they're now seeing how impactful it is on parents. And they wonder if their parents weren't impacted similarly, but didn't have the tools to do anything about it.

Ed 9:55
For sure, yeah. Why or was that we just said I believe the correct statement

Scott Benner 10:00
Sure, yeah. So your your, your parents don't know a thing about your diabetes property.

Ed 10:04
Uh, I mean, they, my mom has passed for the last 10 years. But she would always, not really ask me about him just didn't really want to say didn't care. She definitely cared. But it was never a topic of conversation. Really?

Scott Benner 10:20
No, there's like, so it's somewhere more impactful than Ed needs to take a multivitamin every day. But yes, yeah, they don't really understand the details

Ed 10:30
of it. Right. And I'm thinking about this even at that time. I didn't understand that either. I just said, you know, doctor said, take your take insulin, as you eat, and you'll be fine. Pretty much. I mean, that's the gist

Scott Benner 10:44
of it. What, what stands in the way of the understanding, is it that the internet didn't exist? The way it does now, like what? Like, I got

Ed 10:55
to be good. I didn't even look up on the internet about type one diabetes, or, or obviously, Facebook didn't even exist at the time. So it just I just kind of just would, if I did, I tested myself. I said, All right, I'm gonna have this this much food, and we put them out in the carbs. I'm gonna eat into my pump and let it go. And then not know about anything else until eight again and tested again. Yeah. So knowing what I know now, and how insulin works from listening to your podcast. Oh, maybe Pre-Bolus in 30 minutes before that, I'll probably help.

Scott Benner 11:33
What made you look for more information this late in the game?

Ed 11:38
I had went, I was always part of my, you know, generic type one diabetic group on Facebook. Nothing. You know, I was just looking at I was scrolled past it. But then I, about three years ago, I went to my doctor, I got my 8.2 A one C. And he said, Maybe you should go get maybe you should go get a CGM. So I went to the educator, we talked about it. And we switch my CGM and my pump at the same time. And since then, the fact that I could see my number and make little corrections at a time. It's been really, really, really good.

Scott Benner 12:18
So that seeing that data made you want to do a better job with it.

Ed 12:24
Absolutely. And at first, before I started listening to podcasts, I would just put the CGM on and not realizing why is jumping why spiking like that?

Scott Benner 12:35
How do you find the podcast?

Ed 12:38
It was okay. So when I got when I switched to the Dexcom and the Omnipod, I joined the group on Facebook, probably it was like Omnipod, Dexcom users or something like that, right? And somebody had mentioned your podcast. And I said, Okay, I'm not I was never a big podcast listener. But about the same maybe three months, four months later, I got a Fitbit. So I'm going for walk so I can see my see my steps and and then I started listening to podcasts on my walks.

Scott Benner 13:09
You know, it's funny, people get healthy listening to the podcast, I'm sitting here. Melton to this chair. Oh, I gotta get out. But, you know,

Ed 13:19
I also got a Fitbit at the time, because it was able to, I was able to see my CGM data. So it was and then it's always telling you, oh, we got to get 1000 more steps, you got to get 7000 more steps. So I go from all walks. And then I needed something to do while listening while I was walking. So I listen to podcast, right?

Scott Benner 13:38
So I can recall, this is interesting, because you're a person who I've been aware of for a really long time. And it's easier for me to keep track of men, because they're fewer, like mental math.

Ed 13:52
I'm you been aware of me? No, no,

Scott Benner 13:55
I hope that sounds right. A lot of knobs passed by my face. And so some of them stick for just it's because my brain works oddly, and my brain makes rhymes up about some people's names. But the men are easier to track. Because there's just fewer of them. It's not as common for guys to reach out to me. So I can almost picture myself sitting in my living room getting a message from you, probably through Facebook. Yep, the first time and you were excited. Like to you were excited to reach out and not that other people aren't usually but I remember thinking that at the time. Do you recall that?

Ed 14:38
I never said Do I just come back to the doctor's office after maybe for four or five months on the Omnipod and Dexcom. And I went from an 8.2 to a 5.2. And that was the lowest it's ever been. And what really aggravated me a little bit was the doctor was like there's no way you could do that. What else Without going into having lows. Now if I can just back up a little bit, this doctor I've had probably seen for six years never looked at my numbers ever. Just so my CGM, so my a onesie, right? So what kind of care is that really given me, you know, but to me though I would go, he tells me my agency, he will give me my prescriptions I go on my way.

Scott Benner 15:22
Are you in the city? No, I'm on young. Okay. I always get when in the city, it's rushed. But on Long Island, you should,

Ed 15:32
it's always rushed. You know, they try to book three appointments at the same time. You get 333 to five minutes. And then, you know, you know how it

Scott Benner 15:41
goes, Yeah, you're right out. I have to tell you that one of the best parts of my day is that people pretty consistently send me their, like lab stuff when they come out of their doctor's appointments. Right? And it's, it really feels good. I have to tell you, I get to feel good a lot. I might be one day this, this whole thing will end. And I'll be like, You know what, let me use a music example. You'll really get it, I'll be Lenny Dykstra, like, all the fans will be gone, nobody will be cheering and I'll just be running around like doing flow and gambled away all my money trying to find the excitement that I used to have with my diabetes.

Ed 16:19
But I just got I don't, it's, I think you got to keep this podcast going as long as you feel like doing it. Because there's always gonna be new parents that that have to have to you have to handle the kids with the newly diagnosed and you're gonna be there for that.

Scott Benner 16:35
I also think there's always going to be adults who've had type one for 15 or 20 years and have some sort of a reckoning moment and are running around trying to figure out what to do now. I have no, I have no plans on stopping the podcast. I really do love it. Well, what else you got to do right now? Bear with me? Just sitting here. Right? But But um, but I do. It's funny. I talked to my son about this all the time, like when athletes quit? How difficult it must be for them to no longer get adulation? And why? Why some of them? I think go bonkers. Sometimes, you know, later. And

Ed 17:07
it's funny you say that? You know, I probably I mentioned to at one point my both my sons. They're 11 and 12. They play baseball. And I take them to hitting trainer. And I in the trainer, I asked them. How much do you miss playing baseball right now? And he goes, I can't believe I'm not doing it anymore. Yeah, I just I just I don't have the ability to so great. It's like, what you keep doing something. You can't not think about not doing it anymore. Yeah, we that makes sense.

Scott Benner 17:39
No, yesterday, Colin, I went out to throw. And that's a fallacy he throws I catch the ball on a drop in the bucket. But there's somebody out there as well as an adult with their younger kids probably like freshman high school age, and the kids were running and he was timing them. I don't know why it doesn't matter. But as I was walking away, the guy said to my son, like you play baseball, and he goes, Yeah, and and guy asked him where Cole told him. And then they started talking. I could hear Cole as I was walking away, talking about how much he loves playing baseball. And he's kind of a quiet person. So in two seconds, he opened up to a complete stranger and was telling him how much he loved it.

Ed 18:20
That's easy. And you're hoping he gets a new playing as long as again, because you know,

Scott Benner 18:26
you got a knock on something there because either your talent gets in the way your age gets in the way or you break something or, or something the wrong way. So yeah, great.

Ed 18:35
I think you had mentioned at one time in the podcast, how how many people play baseball as kids? And how many stop playing when they go to high school? And then how many stopped playing when they get to college? And then how many stop after that? Yeah. And then number is this like astronomical? And the fact that somebody can make it to the major leagues?

Scott Benner 18:52
Yeah, no, no, how could they have to be I'm astonished by that constantly that the year my son started playing baseball, 4 million American kids started playing T ball. And in Little League, and when Cole went into college as a freshman, 9000 of those 4 million kids went to play college baseball. And I think after that, you know, to the pros, it's 3000 maybe less. You know, if fewer than that it's um it's an interesting way to keep competing. It's something I think it's good for you like psychologically I'm saying once you make it and people are screaming in your ear and you're like, I am amazing. Like is there I'll joke like sometimes privately by myself in my room or I'll wander past my wife or something like that. But you know, getting back to it when when a person you've never met before 3456 10 times a day, different people send notes going hey my A once he went from a two to five to thank you, the podcast, whatever the note says. It's important to me not to minimize that, like that interaction. So I don't I don't receive them. I go, Oh, here's another one. Like you don't I mean, I don't feel that way. And I and I, even if I felt that way, I gotta be honest with you. I wouldn't tell you, but I don't feel that because I think it would sound like I'm

Ed 20:12
sure it makes you feel good. It's it's exciting that you that you've helped at least one person. And but now you've helped 1000s of people probably.

Scott Benner 20:21
Yeah, I hope so. I hope it's I hope it's way more than I even know about.

Ed 20:25
And it was. It's just, it's the basic concepts that you've always said. It was the first podcast I listened to. So it's always sticks to me. And I don't remember which episode it wasn't anything like that. But it was you Basal has to be right. Timing, insulin, and the amount of insulin. And that's it.

Scott Benner 20:45
I've added now like, understanding the different impacts of foods and staying Oh, the bowl and but yeah, I joke sometimes people are like, Oh, the podcast is so popular. I was like I to be honest with you. The podcast can be six minutes long and one episode, you know, but I don't think any but but, but that but no one would take it seriously, then it would sound right. And it would sound like that can't be right. And plus, I think the other stuff, these conversations just with you and like you don't realize it right now. But you just said something in the last 20 minutes. That will make an adult with type one want to do better? It helps Oh 100% You're like I'd now now know how this works like I can I now understand how this works. And even I that's why I'm always amused when I'll stop recording with somebody in there. Like if you don't want to run that I'll understand. I'm like what? Like, well, I didn't say anything was like you don't even know what you just did? Like you share. You know,

Ed 21:45
that was my reservation over even coming on the podcast. I'm like, What do I have to say? It's not gonna be exciting.

Scott Benner 21:52
Listen, you're a person who you keep like you send me your A onesies? I would say consistently, right?

Ed 21:59
Pretty much. Yeah, cuz I said, I said I'll say it every time cuz you're the only person actually make me understood why what I was doing. No locker has ever said Pre-Bolus for 30 minutes before you eat. Maybe check yourself if the doctors ever said that.

Scott Benner 22:16
Why don't we just pay attention a little bit? Yeah. That's fascinating. Because can you look back retrospectively? Would you have if someone made it important to you? Do you think

Ed 22:30
I I might have, but somebody who said you should really take insulin for about 30 minutes or 20 minutes for you. That would have definitely stuck in me casted myself aboard the time. I don't know.

Scott Benner 22:46
You might not have done that. I have to tell you, Arden you know at this point. I mean, I remember before CGM. I must have tested Arden's blood sugar 10,000 times, you know, in a handful of years, like I mean, a lot. And now, her fingers have recovered. Because I mean, look not for nothing. I don't I said this probably once or twice, but make bear repeating. I wouldn't let anybody test my blood sugar when Arden was little, because I had a real genuine fear that if I knew what it felt like, and I thought it hurt, that I wouldn't be able to do it to her. And I was always doing it to her, so I wouldn't do it, right. And then that morphed as she got older, and suddenly, like testing your blood sugar. She didn't care at all anymore. Right? And so I tested mine, and I have to be honest with you like when that Lance goes in, it ain't fun.

Ed 23:43
So it's definitely not. I mean, but I just remember this one time, I was going to a family barbecue. And I was giving myself in my in my insulin, as I was in the car, and my cousin comes out and goes, I can't believe I can never get myself shots. I go, well, the alternate is. Is that all die? Yeah. Like, if I don't, so. I bet you. Yeah, probably. If you don't, you know? Or yeah, something would really, really be wrong with you by now,

Scott Benner 24:14
but maybe by our people who wouldn't, too. Well, I mean, or do it less frequently to avoid it and maybe that leads to higher blood sugars or stuff. Yes.

Ed 24:24
I mean, I'm sure there's the you know, I said I never was a horrible, I hate the hate. Horrible diabetic. I was never that bad. I just had a heart just I was just lazy about testing myself. I always give my insulin. I would always try to try to eat but then like the testing thing taught would get in the way of like whatever I was doing or

Scott Benner 24:43
were you married when you were diagnosed? I was

Ed 24:47
just married since then divorced and remarried.

Scott Benner 24:50
Okay, deal of this so much did it again.

Ed 24:55
I say this all the time. You making mistakes in your 20s you fix them in 30s and your 40s guy actually sought to live happily. Without me. What happier?

Scott Benner 25:06
Yeah. So you agree with me when you hear me say like, I think I've just started to turn into a person in the last five or so years?

Ed 25:12
Yes, yeah. Just a yes, yes.

Scott Benner 25:17
But my point is that you were busy. Right? So you didn't you didn't? Your kids aren't with your first wife. Is that right?

Ed 25:24
My, my daughters are older. Oh, I have two daughters that are older. And they are 28 and 22. Oh, so you have four kids, then? I have four kids.

Scott Benner 25:34
I see. I think of you as having. Hopefully your daughters will never listen to this, I think of you of having to because you mentioned the boys and baseball. Like that's why

Ed 25:43
well that. My daughters are older. So they're kind of living their own lives. I have. And I have a grandson now was six months old. Wow. Which is, which is I was as being only 4048 I was like, There's no way I could be a grandfather. I'm never gonna be called grandpa ever.

Scott Benner 26:02
They're gonna call you grandpa. Are you? Yeah, yes. And your smile, and that's gonna be the end of it. So yep. Oh, that's kind of that's kind of crazy. Is there any autoimmune stuff with your family line or with your children?

Ed 26:15
Nope. Nope. Not I know of not yet interest. And that's always been my fear that my daughters are gonna be my daughters or my sons are gonna get type one.

Scott Benner 26:24
Well, they would you look like would you do trial that for your boys? You wouldn't

Ed 26:29
know? No, I don't want I don't want to have the idea of, you know, the thought about them getting it and knowing they're gonna get it. I just, I'm just gonna have to happen.

Scott Benner 26:37
Okay, and then you'll just you'll you'll see it coming. And then

Ed 26:41
yes, obviously know the signs, you know, drinking 1000 gallons of water, peeing all the time losing weight.

Scott Benner 26:48
Guess what? You've got diabetes? Yep. Do your do your girls. Are they aware of it? Like, do you think they think about it?

Ed 26:58
No. I mean, they they think about the fact that I have it. And maybe some of the things I have to do take care of it. But they don't. I don't think they're worried about getting it at all.

Scott Benner 27:07
Interesting. Okay. No, makes sense. Oh, here's a non sequitur. When you hear me tell people that their bagels are terrible. You know you like not?

Ed 27:18
Yep. And pizza as well. The pizza. Yeah. And you don't understand that. They're really is in the next three to four months, probably probably even sooner than that. But by the time this gets listened to, I will be living in Tampa, Florida.

Scott Benner 27:32
Oh, are you moving for good for work? For work? Yep. Yeah. So there's a pizza place in Tampa that the last time I was there, they trucked the water down from New York.

Ed 27:44
So I hear that a lot. Are they really doing that? It was good.

Scott Benner 27:47
I thought I thought I was home when I was eating it.

Ed 27:51
Are they really? Are they really shipping in water? People say they say that all the time. But are they really doing that? That's what

Scott Benner 27:57
they said. That's what my buddies I don't know. You know?

Ed 28:01
Mom was like boxing up pictures of water. And

Scott Benner 28:04
imagine it's in a truck. But now that I'm thinking about it, the guy I went with is a is a lifelong New Yorker. And it was almost like going for a pizza with a mob. Don, the way you talk. They bring it down from the truck. So maybe

Ed 28:24
I will say that that's what they do.

Scott Benner 28:27
I have to say, I have to admit it. I'm gonna shout him out right here. I'll never hear this. But Charles is one of my favorite people that I don't see enough. But who introduced me to the phrase, the juice isn't worth the squeeze. And the way and the way he says it's so much cooler than when I said,

Ed 28:43
Oh, yeah, I'm sure it is. I probably couldn't say cool, either. So I'm right. I'm right with

Scott Benner 28:49
you. That's crazy. So how do you manage now like, what do you have the pumps?

Ed 28:54
I have Omnipod and Dexcom 36 on the pod and I'm going to say if I didn't know about the other part of the time I was looking at pumps, I probably would have went with the T slim. Okay, but the pan and whatever it's called because of the integration with the pump. The public CGM.

Scott Benner 29:15
How long have you had how long you since you made that switch? A couple years?

Ed 29:19
Three years. Okay. So you probably probably six, six months after I first contacted you.

Scott Benner 29:24
Alright. And so you were looking at that because of back then? It was

Ed 29:30
I was it. What did they I was on a Medtronic. I was on Medtronic. Right. And it just I felt like it almost stopped working. I don't know if that's the right term. I think it was because I was only using my stomach over and over and over and over again, I say and the absorption just didn't seem like there was it was working.

Scott Benner 29:51
Yeah, that'll happen. You have to keep moving your sights around. Yes.

Ed 29:55
So good. With Omni pod. Obviously you can put it any way you want. So I've been on Omnipod and Dexcom 36 For three years

Scott Benner 30:06
for you. When when you were looking originally though, you said you were thinking about the tandem. And why did you go down if I,

Ed 30:11
if I had known about it, I went into my diabetic educator when my doctor said, Maybe you should go on a CGM. Okay. And she said, Well, here's that. Here's what the Medtronic looks like now. And here's what the Omnipod looks like. Those are the only two options like, you know, at the time, I, I'm sure there are others. But those are the options that were presented to me. So I had the fact that it was normally possible always tubeless got I don't have to get, I don't have to get stuck on a door handles. I'm running to the bathroom in the middle of the night.

Scott Benner 30:41
Right. So I see. So you're saying that if you would have known about the integration with tandem that yes, that might have moved you over? Yes. But now it's

Ed 30:50
interesting at the time, at the time, I wasn't even like, I never really looked at all the pumps and or I tried to CGM once and I left the first time you referred to it as a hot tool needle.

Scott Benner 31:03
Because that Medtronic one was tough, huh?

Ed 31:06
Oh, it was I was like, There's no way I'm gonna insert this into me every time. So I did it twice, three times, maybe I maybe use it for a month, never see the match up with what my meter said and hurt like hell to put it into

Scott Benner 31:21
use abilities important. So this is an interesting thing, because had you gone tandem at first back then they just had Basal IQ Wait where it would have like to shut your Basal off to stop you from getting low. Now they have control, which is an algorithm and Omnipod is gonna come out. I mean, by the time this is out, I am very confident in saying that people are listening to this now on the pod five is available. So mine may listen, if I have to go back and edit that part out I'm gonna be praised that should definitely be out by then. But my point is different is that you didn't find an algorithm. So instead you found a podcast that you have an A one see right now that I don't know if an algorithm available retail could could meet

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Ed 34:13
my current doctor basically said the same thing. Because why you're doing it right now. I just want it so I can go to sleep and sleep through the night and not have to worry about alarm going off saying oh, your blood sugar's 68. Maybe you should get up and do something about

Scott Benner 34:27
it. Oh, it'll do that for sure. So what is and I haven't used on the pod five yet. This is interesting talking about the future when you're looking around. Arden does loop because loop lets you set targets lower. Arden has your a one C and she has all the stability. So what that says to me is that the retail available algorithms are able to accomplish that. I imagine if if the FDA if the companies would go back to the FDA and try to test again Lower tolerances, right. So you have to wonder if the companies are going to have the, the drive to do that or not. Because the the other side of it is that is that you throw on the pod five on most people, people who don't listen to this podcast, and you're going to take people with eight a one season 2681 CS, and they're not going to know how it happened. It's just going to be magic. And they're not going to get you know what I mean. And so, the ability to help vast swaths of people using insulin is right here, it exists. Now, you just got to get them on to people, will they? Will they want to make a super user version of it? I hope so. I really do. Or maybe it's manipulatable to the point where you can make some setting changes where you'll have lower outcomes, I don't know, because the only part five, from what I'm understanding is a learning system.

Ed 35:54
So it learns your habits is that it

Scott Benner 35:58
they say it makes different adjustments as time goes on. And so it's

Ed 36:03
not gonna have like all those gazillion settings. You got to do a loop now, or is it going to be I

Scott Benner 36:07
don't imagine that they're going to make, I mean, listen, the one thing to say about lupus, there are a lot of settings. And if you get them wrong, it doesn't work. So

Ed 36:16
yeah, that was I thought about when they first said, Oh, loop is available now for Omni pod and Dexcom. So I'm like, Oh, well, let me think about it. Yeah, but first, I didn't have an Apple computer. So that was pretty much out of out of out of the,

Scott Benner 36:30
I think, yeah, I think just being Do It Yourself would would move most people away from it. i It scares the hell out of me still.

Ed 36:37
I mean, I'm not like computer illiterate, but I'm not a programmer. So but I was able to build my own Nightscout Nightscout account, I was able to do that. So I can follow directions. But then then, as it went on people, oh, it would stop working. And you had to get you had to get this. You have to get this rilink from some guy, you know, wherever he's go something out of his garage. I mean, I don't I don't, but I hear it just seemed a little bit. Maybe. Maybe I'll just wait.

Scott Benner 37:10
Right, right. Oh, listen, had had

Ed 37:12
it. Don't get me wrong. I'm not trying to sit on anybody who does this? No. I mean, I'm happy that they're doing it. Just for me. I don't I just I'll just wait.

Scott Benner 37:22
100% I think you're I felt exactly the same way. And

Ed 37:27
if people you have a great you have a great resource that you can call in anytime you

Scott Benner 37:30
want. Yeah, there's people who are willing to help me, which is nice. But maybe a month or so ago Arden's phone died. Finally she had, she doesn't replace them constantly. So her phone was pretty old. And it just she comes to me one day, I've been telling her for six months, we have to, you know, your phone is done. And she's like, No, but

Ed 37:47
it's great color. She's a teenager and doesn't want to get a new phone. Now she

Scott Benner 37:51
liked her phone, she didn't want a new phone. So one day, she goes, Hey, like real, begrudgingly, she comes to me, she goes, I think we better get rid of this phone. I was like, Oh, she must have seen something pretty sketchy happened. So we go to the store. And we say we're going to trade the phone in the train, the phone had value, and we were going to get money back for it. And so we go in, and we're like, look, we need to trade in the phone, we're gonna buy a new one. But you can't have the phone right now. We can bring it back in a few hours. And the guy's like, why don't like her pancreas is on this phone, basically. So we trade in the phone, I don't get the money. I go home, get the new phone set up, I have to make a build of the app for loop and put it on a new phone, then get the whole thing switched over get it running correctly. And once it was working right and everything was switched over. I was like, Okay, give me your other phone. I'll blank it out. And I'll take it and and get my money in which I did. But it was a lot of work. And it's more than what I think you would expect what most people would expect. I think that most people would want a retail version of this. Like I download an app from the App Store. I turn it on it pairs to the thing the thing works, or it comes with its own controller they and it's prepared or what like you don't mean like no one's looking to build an app in you know, some program and have to own an Apple computers that you can be an I'm an app developer, for God's sakes because my daughter's on loop, right? I had to buy an app. It's too much. I'm not gonna lie to you. It's too much. You know what I mean? But the damn thing works amazing.

Ed 39:28
Think about the people who I I'm astonished by the people who actually take the time to do that, and then let everybody else know about it too. Is that's incredible.

Scott Benner 39:39
Yeah, people are inherently good. At least some of them are and you wouldn't think sometimes you get you're on you're out on Long Island you think everybody's an ass but you said oh, you only have to drive there once to not like people anymore. That's for certain but

Ed 39:59
I I'd say like though I like most dogs, more than most people

Scott Benner 40:03
cold played baseball out, like hours deep on the island one time. And this will happen, maybe, but I hated the drive out there. And the drive home. Like, once you get like, you finally get off the island you come up to I'm not accustomed that spacers all those bridges, and it just looks like, it looks like somebody took a handful of spaghetti through to the wall, and then said, that's what the road should look like. And

Ed 40:29
just Yeah. It makes you feel any better. We feel the same way about driving to Jersey.

Scott Benner 40:34
So imagine you do. Like I've never been so happy to be on the New Jersey Turnpike in my life as I was coming back from there. Oh my God, finally, just a regular amount of insanity.

Ed 40:46
Yes, I'll agree with that. I'll give you that

Scott Benner 40:48
there are people all over the Midwest listening to this who could never like you guys would never understand what traffic is. It's just feeling like you're just, you've got a hold of the steering wheel. And you're like, every decision I make could be my last.

Ed 41:03
Yes. And just and just sometimes the the anger of just sitting on a light and then knowing you only got to go about three feet when the light turns green.

Scott Benner 41:12
Yeah. No, nobody should live here. You'll probably enjoy Tampa much more except for I hope so. Yeah. Anyway, so the algorithms right, like, they're the future, I'm confident. I am 100% confident they are, I am thrilled about on the pot five coming out, it's going to go into most people and be an amazing change for them. And I hope I hope that adults living with type one who are fighting through sevens and eights will have the, the the ability and the nerve. And the kind of you know, enthusiasm to try it because it's it's gonna be astounding. I'm sure control like us the same way. You know, like in different it gets there a different way. But I'm sure it will be a great improvement for people. So yeah,

Ed 41:59
the thing is with the algorithm, if my blood sugar starts going up, I don't want to let the algorithm just take care of it. I want him to take care of myself at that at that moment.

Scott Benner 42:12
So you don't want to slowly go after you want to be more aggressive about it.

Ed 42:15
Yes, yeah. So a lot of times, I'll just oh, I'm gonna go for like a 15 minute walk or something if I have the time, and that usually brings it back down, or starts getting it back down where I want it to be.

Scott Benner 42:26
Right? Yeah, we're making, you know, I don't know how Omnipod five is going to work yet, because I haven't seen it. But I assume it's going to work through Basal increases. And the version of loop that we use doesn't work through Basal increases, it works through boluses. Okay, so the the original version of loop that we had, if I'm getting this wrong, I apologize to the loopers. But I think that would be Pete's version makes adjustments by Basal. And it worked great, but it was too slow. Like it didn't stop spikes quickly enough. It didn't bring them down quickly enough. Like for me. I think I use Ivan's version now. And that one, when that one sees a rise, it makes a Bolus. Okay, see, that's pretty legit, the way that works,

Ed 43:13
and the fact you know, the fact that you that personal Do you have like I said, they they have somebody who's just making this stuff and giving it to you is great. But if I was to use it, I would think I would probably only use it at night. Because I think I'm very good at keeping my blood sugar where I want it without having to do anything else.

Scott Benner 43:32
So when we started, I would say to people, it's really valuable overnight, but during the day, I do a much better job than it does. But right and I really taught myself how to think about insulin within the loop system. And now I know how to use it and keep it open.

Ed 43:50
I guess I guess we have the user for a while. You will you're gonna understand that better and be able to use it the way you want it to work.

Scott Benner 43:58
Yeah. Yeah. And I I'm excited for on the podcast, actually. They just it's interesting. You brought it up, because I, you didn't have any notes for today. And I didn't know what the hell we were gonna talk about. But I just got an email like an hour ago. That was double checking on my NDA for Omnipod. Five, from insolate. Nice. So that must mean if I'm guessing that must mean that we're going to see it here pretty soon.

Ed 44:28
That's fantastic. Is there? I'm sure you'll have an episode about how it works.

Scott Benner 44:31
Well, as soon as the NDA lifts. Yeah. But I think it's possible. I'm going to get it to use it before other people. So I won't be able to talk about why I'm doing it but just so special. Well, I don't think it's titled like that's why I think I think it's I think it's slowly because I reach a lot of people and and I've been telling insulet for years as this has been developed. You know, that I thought there was value in me knowing how to use it. Before was on the, you know, before everybody was holding it in their hands, you know, because I said there are going to be a fair amount of people are going to turn to me and say, I don't know how to use this and you don't want me learning it at the same time they're learning it. I was like, so it might only end up being weeks. You know what I mean? That I have it, you know, ahead of other people. It's not like I'm gonna have it for six months before other people.

Ed 45:21
But definitely that people did you go on loop because people were pestering you to do an episode about it.

Scott Benner 45:27
There's a there's one woman specifically, I just, I just actually recorded with her recently. And she, you know, came on and talked about why she pestered me about it. And it was the same reason she's like, I need you to understand this so I can understand it better. So it was her she's like, I'll help you build it. I'll get you on it. Like you just please. Please, like, learn how to use this so you can talk about it.

Ed 45:50
I need you to learn it. So you could teach me about it.

Scott Benner 45:54
It's uh, it was it was a, it ended up being a really great thing are names Gina. She'll be on her episode. I'm sure by the time somebody hears yours will have been up for a while.

Ed 46:04
Well, I don't expect my episode about till probably this time next year.

Scott Benner 46:09
No, no, you'll be around Christmas or so. New York holiday treat. But what she did ends up being I mean, it was, it was amazing. Because the one thing I learned about algorithms are they let you sleep. And I've been sleeping really well for a couple of years now. And it's

Ed 46:33
I mean, that's, that's all I want.

Scott Benner 46:37
Your like, half a one see if I can sleep through the night.

Ed 46:41
But it's just you know, other times I'll just sleep because I'm just stare at the walls thinking about things I can't control. And, and then oh, then my blood sugar goes low. And now I'm up because of that.

Scott Benner 46:51
Yeah, you have that? Are you one of those people like you your brain starts talking to you when you try to go to sleep.

Ed 46:59
Doesn't that oh, that doesn't happen. Everybody.

Scott Benner 47:01
Oh, man. When it's time for me to go to sleep, I shut my eyes. I go to sleep. The world could be coming to an end. And I'm like, Well, I hope my wife,

Ed 47:07
my wife the same way. Yeah, we'll be laying in bed. I'm sorry. I'm gonna go brush my teeth. By atomic come back. She's asleep. And I'm just looking at us sleeping peacefully, and I'm just awake thinking about things I can't control.

Scott Benner 47:20
No kidding. Would you talk about that for a second? What is it? Like? What are some of the things that most like frequently popped into your head?

Ed 47:28
This you know, I got to make sure I got to make enough money to pay the bills. I got to make sure that the the oil in the car gets changed stupid stuff, things like that. It just I don't know why think about it. Just do

Scott Benner 47:42
so you're not worried about like a comet hitting the planet or something? No,

Ed 47:45
no, no, not now. Now I'm going to be thinking about that tonight. Probably.

Scott Benner 47:50
Car won't need oil and that situation,

Ed 47:52
right? I mean, I'm just using those stupid examples. I mean, this, you know, a lot of times, that now obviously would be about the move, I got all those anxieties about selling a house, getting a new house, packing the house up getting rid of all the stuff, we accumulated over 30 years that we haven't touched in 12 years.

Scott Benner 48:11
I think of tasks very simply. So I have a I have a to do list. In my mind. I have learned to write it down because I'm older now. And I will forget things. But what I've learned is that the things that have to get done get done. That just happens, right? The cream rises to the top is the It doesn't it doesn't. Yes, it all falls apart, something falls apart. So things make themselves obvious. Like suddenly you're like, Okay, this becomes so I'm very my to do list shifts. You could be the next thing on my to do list. And if the fifth thing becomes important, guess what? Everybody slides down, the fifth thing jumps to the top. So I'm never worried about getting things done. Because my assumption is that I'm going to adult during the course of the day, I'm going to work. I'm going to see my family, I'm going to make food. Some days I won't feel as well as I feel other days and the things that need to get done. I'll do first. And I guess that's why I don't worry about anything. But I don't know. I wish I could be like that. Yeah, I'm sorry for you. It sounds terrible. I watched my wife.

Ed 49:17
Like it's not like that every night. But there's you know this sometimes I'll just can't go to sleep and then I'm keeping myself up because I'm thinking about things that aren't that important.

Scott Benner 49:26
And if you're rest you can take care of.

Ed 49:29
Yes. I'm sure I'm not the only adult out there that does that. No,

Scott Benner 49:35
I don't believe you are not not nearly that's a level of anxiety. Right?

Ed 49:42
Uh, probably, I mean, I don't, I don't find myself during during the day being very anxious about anything. Okay. I just want I'm trying to go to sleep. That's all I'm finally quiet enough where I can think about things and then I start thinking about things I shouldn't be thinking about.

Scott Benner 49:57
Yeah, no kidding. I I was sitting with Kelly the other night, she's watching something on television. And I was like, I was like, Hey, I'm done. Now. I just turned over something on TV and it's loud. There's lights on, I was like, it's over for me, because you're going to sleep. I'm like, I'll likely be asleep before this conversation is over.

Ed 50:20
That is my wife 100%. And I'm just be looking at her as she's sleeping and, and snoring. And like, wow, I wish I could just do that.

Scott Benner 50:29
Well, I don't know why I can do it. I that I cancelled the podcast right now bottle, whatever that is and sell to you. Because I know it's a big deal for people. So you said you want to be able to sleep better with your blood sugar. So do you see lows overnight?

Ed 50:44
Not a lot. I mean, sometimes it'll drift into like the high 60s. But my alarm is set for 70. So I'm up just down that low. But it's not all it's not a lot. Yeah, it's, I don't get a lot of lows. I don't get a lot of highs. Although last night, I was at my son's game. And we did drop a little low with like, low than I expected. But we take care. Hello. Hi. So

Scott Benner 51:13
yeah, were you more active? Do you think or

Ed 51:16
yes, what I did was that we actually became a game practice because the other team didn't show up.

Scott Benner 51:21
Oh, so you came to watch a baseball game and suddenly you were a dad helping with practice?

Ed 51:26
Well, I'm one of the coaches on the team. So I'm always on the field. But But now Now we're running a practice and I was playing I was out playing left field and I was running around a little more than I anticipated.

Scott Benner 51:38
You also just named your episode. Okay, out in left field. I mean, I left fielder or out of left field I'll find

Ed 51:48
the thing I haven't thought about what it's gonna be called before I got on on the on this call with you. Organic, you know, organic we named itself

Scott Benner 51:57
Yeah. For most people listening to you. I could just call it a Oh, and they would understand but you don't hear the way they will. I don't hear your accent

Ed 52:05
the way they will. No, cuz you, you and I kind of the same. Yeah, I

Scott Benner 52:09
basically feel the way you're feeling right now. Oh, okay. So you get out there you start hustling around? No pre like you didn't say to yourself, that's interesting. Why didn't you say to yourself, I should probably eat something before I start doing this or to try to get ahead of this with a Temp Basal or something like that. Or did

Ed 52:27
you? Because I didn't think about it. I didn't. I was already. I was already there. I didn't bring any foodie because that's how I am. And I always have my I always have something with me if I need if I go low. So I'm never too worried about it. So once I started drifting down low, I just pop some glucose tablets and 510 minutes late. I was fine. Wow. Okay. But yeah, I don't. The Temp Basal is down. At that point. It's too low. It's definitely too late.

Scott Benner 52:59
Yeah. But so but I was really interested in I thought you would say what you said, but I wanted people to hear it. Like it just happened too quickly, like life happened. And yeah,

Ed 53:08
exactly. Exactly. It really, you know, I was fine. The whole practice and then it started. It started going down. 9892 8471 I got the alarm. 62. All right, time back. At that time practice was over. I popped in my glucose tablets. I was I got down to 45. But then I was by the time I was home, I was 105

Scott Benner 53:36
While it's drifting down. What's your thought process? Like, maybe it'll stop

Ed 53:42
a spec, this is gonna be over soon, they'll take care of it.

Scott Benner 53:45
Gotcha. Because a couple of tabs in the middle of that drift would have stopped the 45 You think

Ed 53:53
100% If we would do the last thing we were gonna do. And I said, All right, let me just get get through this. And then I'll be able to take care of it. And I'll be fine. I mean, don't get me wrong. I wasn't about to pass out or anything like that. I just I felt that coming on. No, no, I'm like, Yeah, this is gonna be over in 10 minutes, so I'll take care of that.

Scott Benner 54:13
Okay, now I just wanted people to hear like your thought process to orient because it obviously worked out fine for you.

Ed 54:19
Yeah, it just, you know, I just needed 10 minutes and I was fine.

Scott Benner 54:24
Okay, interesting. So you just sit around a little bit before you left, you just take them and make sure you're okay. And then roll out.

Ed 54:31
Uh, I was slowly taking my time getting out of the out of the park. And then it was a little bit of a walk to the the car so I took that a little slower. My wife drove home, and I sat in the front seat and talked to her. That was fine. My time. My time was only a 15 minute ride by Tom. We were home. I was already in the hundreds,

Scott Benner 54:52
right? Do you think anyone around you knew?

Ed 54:56
No? Absolutely not. Right? So this isn't like why Because I told her, and I'll say it, I'll be behind you in just a few minutes. Right? And but like, if I know what no one knew?

Scott Benner 55:07
Yeah, if I said to your kids, your dad was playing left field last night, his blood sugar was getting low. They would be surprised by that.

Ed 55:12
Yes, gotcha. Everybody, everybody, all the other parents, everybody would have been surprised to have any trouble. I mean, I, I'm sorry. I don't I don't actively promote that I have diabetes, but I don't actively say I don't have it. I it you know, if somebody asked me about it, I'll tell them. But I'm not going out telling everybody Oh, I have type one diabetes.

Scott Benner 55:33
Don't show up in every new situation. Oh, it's a new season to the baseball team. Let me first tell you about my pomp and you just kind of

Ed 55:39
live your life. I mean, I tell the other coaches and other coaches, obviously, we're actually good friends with them. But I would tell them about it just just in case, some odd chance something happens. They know what my situation is. Right? That makes sense. But I'm not I'm not telling everybody. And I usually wear my pod either on my leg or on my upper arm. So it's not really noticeable. I see.

Scott Benner 55:59
While the ball was flying, listen, I'm giving your kids a lot of credit while the ball was flying around. Maybe while you're watching kids strikeout I don't know what was happening. Exactly. But did you feel like you could react if the ball came to you?

Ed 56:11
Yes. I thought at the time. Yes, I was still fine. Yeah, just the variable of me moving around a little more than I anticipated, had an effect 20 minutes later when we were doing another drill, but I was in left field, right.

Scott Benner 56:23
So that's where an algorithm would be helpful. Because the one thing that people might not understand about them as the way they keep stability is like, it's the it's the future seeing part of it, right. So it you know, if your Basal is set at, like, let's say your Basal is 1.2 an hour, I don't know what yours is. But that was okay. So let's make it one just for fun because it's around. Yep. So your Basal is one an hour. And this Basal is holding you nice and stable at 590 for a couple of hours at a time. And then the algorithm in loop believes that you're going to get lower later, it'll cut the Basal back. And so you'll never notice that happen. But when you go back and look, even with great settings, you'll see Basal get dialed back throughout the day, over and over again. But when you're a person who's on a regular pump, your Basal is one no matter what, it's not looking into the future. And I'm not saying that it would know you were going to get active, I'm just saying it, it can tell like oh, this, this 90 that I'm holding on to is going to become 85 and my targets 90. So it'll, it'll I don't know, it'll make your one Basal point seven for a little while, or it might suddenly take it all away, and then bring it back, you know, may take it down to zero for five or so minutes, and then bring it up to point two, it's fascinating to watch at work.

Ed 57:46
That yeah, I remember listening to somebody on your on one of the episodes where it happens. It could change like five minutes and stop changing and it would change again. Yeah, something else is just like, and the fact that it could do that is incredible. I look forward to be able to finally use it, it teaches

Scott Benner 58:05
you to while you're watching it like That's why if I'm helping somebody who's not on an algorithm, like you can say something like, you know, we're gonna make your Basal like, I don't know, from from one unit. And now we're gonna make it three units an hour, but just for like, 15 minutes, then shut it off. And you know, like, or, like, we're gonna take it all away, but I only want to take it away for a few minutes. And it sounds crazy. But once your settings are super stable like that adjustments in the moment are more. I want to warn here, they're more reactionary, like whereas if you were one unit a day all day with your Basal and you wanted to do a Temp Basal for activity, you might have to do it like 90 minutes prior. Right? Yeah. But it once you're on the algorithm, and your settings are right, you can make those adjustments a little sooner to what you want to happen.

Ed 59:01
That's I've been saying it's easy to say, Oh, you just dial your Basal back an hour and a half before you exercise. I don't know what I don't even know if I'm gonna be exercising an hour from now. You know, so it's tough for me to draw. Anytime I exercise, I have to eat something before I go do it. Because it you know, a lot of times I go for a bike ride. And I'm not scheduling this time ahead of time. I'm just Alright, I'm gonna go for a bike ride now. Right? So let me eat something.

Scott Benner 59:26
Yeah. So if you were to say I'm going to go for a bike ride right now. Oh, you know what? Let me set a Temp Basal an hour from now. You might not have time to go for that bike ride anymore.

Ed 59:35
Right, exactly. What I just said. Yeah, it's not a lot of times. I'll do it in the morning and then alright, I'll get up in the morning. Sometimes I don't feel like doing it. So then I've I my whole blood pressure is often because all right, I already dialed the back. But now I'm not going to go because it's Oh, I decided it's raining outside or something. So I don't go. I know I had a slow Basal. I need to bring it back up. So I just for me personally as my, my choices, I'll just eat something before I exercise,

Scott Benner 1:00:06
right? I think that, I mean, obviously the tools are in the pro tip episodes. But I don't imagine that means that everybody can use them. I just think under even understanding their concepts might help you make a amalgam of that idea with your life and find something that would work for you.

Ed 1:00:27
Yes, it's that episode about exercise. It all revolved around the timing of everything. Yeah. Like I said, there's nothing I can't just say, Oh, it's an hour and a half. Now I'm gonna go do what I want to do. Because life happens and doesn't happen.

Scott Benner 1:00:45
Yeah, well, also, but and the reason it's set up that way is because if you're trying to lose weight with type one, you can't eat to exercise because then you're

Ed 1:00:54
I don't Yeah, I don't eat. Like, I can say I eat something I like a banana. Okay. Or yogurt or something like that. Do that. Yes. And it's not something that's gonna, I'm not eating. I'm not going to grab a meatball hero and have french fries on the side with it or anything.

Scott Benner 1:01:11
How often as a person with type one do you eat when you don't want to?

Ed 1:01:17
Uh, for me? Not Not much. Good. I mean, and I don't eat when I don't want to, or eat when I don't want to. It's never I mean, sometimes maybe I'll have to go get a little snack or something. But I'm not. It's never been like, Oh, I gotta go eat right now. Because my blood sugar is 82.

Scott Benner 1:01:39
Yeah, I just wanted to know, like, and was it always that way? Or is it since your controls been better over the last couple of years?

Ed 1:01:44
It's it's always been like that. i It's, I've never really, I can't I can't remember any time where so I gotta eat right now. There has been times like, we're sitting around the house. Maybe we should go get some lunch now because I'm not going to wait another hour and a half. When it's three o'clock when it's all you know, we should be at lunch now. But sometimes, because I'll know, maybe we should eat lunch now. Because my body's telling me if we should probably right, that's

Scott Benner 1:02:11
better. So when should you correct lows with glucose tabs mostly?

Ed 1:02:16
For the most depends, I if I'm out, that's what I have with me at all times. A lot of times while I'm home, I'll just drink a little bit of orange juice, right? See your your real guy just a little bit just just enough to get back up. Not not a glass of it, where it's gonna make me do under 50

Scott Benner 1:02:31
Right now, but you're like a classic guy though. Like, if you have to eat a banana to go for a bike ride. You're not begrudgingly the bad one. I don't want this damn, but I'm not gonna do this F diabetes, you just do it? Because that's what needs to be done.

Ed 1:02:41
Right. Exactly. And then yeah, yes. And I found a lot of challenges Lately though. Because about a month ago, I cut out bread and pasta and, and rice. So to do that, just because I just want I wanted to lose a little bit of weight. And I had to make those adjustments on what I was gonna eat. And now the whole protein and fat comes into effect. So I was able to actually, because of the pro tip episodes actually be able to do this. I was always worried about cutting out bread because I'm like, how am I gonna do this and take care of my Bolus is in my insulin needs without the carbs in there. Interesting. But I was I've been doing it for a month. And as I showed you my last couple graphs that the weekly report 99% And range and the low carb has made it like my blood sugar is fantastic.

Scott Benner 1:03:41
Yeah. What's your range set up on that clarity report?

Ed 1:03:45
It's 65 to 155. And always I set it at 155 is that's what 7.0 was. And that's what they always said. Like, that's the goal.

Scott Benner 1:03:55
I'm amused that people who listen this podcast feel it necessary to apologize for having their high alarm set at 150. No, I mean, that's, that's my range. Yes, my range, the range where you're reading it at okay, right.

Ed 1:04:09
My alarms go. My alarms go off at 730 at night and 120 during the day.

Scott Benner 1:04:16
Okay, and that's your 120 is your high

Ed 1:04:19
bar alarm. Yeah.

Scott Benner 1:04:20
So then I misunderstood but then you were like, oh, no, no, I would never put my higher alarm at 150

Ed 1:04:25
No, because it's going to be five but you might actually get the 185

Scott Benner 1:04:29
and then you're then you're in the battle then.

Ed 1:04:32
Yes. And then I'm sitting there going to sit up all night thinking why is this happening and then something whole cycle repeats itself? No, I my alarms are set so I can take option.

Scott Benner 1:04:46
Yeah. Well, I am enjoying this. But I have to take our indoor dentist appointment soon. So I want to make sure that we talked about everything you wanted to except I don't think you wanted to talk about anything so we must be okay. Right

Ed 1:05:00
Yeah, I think we had this was a nice conversation.

Scott Benner 1:05:04
I appreciate it. I thought so too. I and for other people's, you know, Saturday, I didn't ask you. I have one question I'm gonna ask you outside outside, well, nobody don't care but me and you. So I'm gonna, I'm gonna stop the recording and ask in a second. Okay. All right. Thank you so much for doing this. I really appreciate it.

Ed 1:05:23
I appreciate having me on. Thank you so much.

Scott Benner 1:05:30
First, I'm going to thank Ed for being on the podcast. Thank you very much. And then I'm going to apologize to him because at your episode was going to be called out in left field right up until it hit me that your name was Ed and that that horse that talk had a TV show with a song and then I mean, who knows? I'm childish. So this is what happened. You're the famous Mr. Ed. Thanks also to the Contour Next One blood glucose meter, head over to contour next one.com forward slash juice box to learn more and get started today. The meter actually is really great. Like I'm not kidding, it rips, give it a try. Contour next one.com forward slash juice box links in the show notes. Links to Juicebox Podcast calm. I think I could have been an old timey radio announcer I just found a bunch of old radio ads online. I'm going to try one. Quaker Oats. That's a good one. Your best bet for a hot breakfast. Quaker Oats. Let me try again. Let me try again. Your best bet for hot breakfast is Quaker Oats. Quaker Oats. The giant of the cereal is Quaker Oats who wrote this? I like this next part ready? Delicious. Hold on. Let me get a drink delicious, nutritious. Makes you feel what was the rest of it? Hold on. I gotta find out. Me go back.

Hold on No kidding. Delicious, nutritious. Makes you feel ambitious. I'm getting this hold on

I don't get this part but I'll do it again. The giant of the cereal is Quaker Oats

Wait, is it saying if I eat quicker it's I'll be a sports star. Well the second must be what LeBron did. Yes, if you want to be a star that's how it stars

yes, if you want to be a star in sports in school activities, make your hot cereal Quaker Oats. That's a hell of a statement.

Oh, cuz Quaker Oats helps grow the stars of the future. I think I could have done this. This guy had to have been drunk off his ass. Am I wrong? Is I mean who talks like this? Wait, there's some for cigarettes. This has got to be hilarious to our so many four Chesterfields. My dad used to smoke Chesterfields, homes. What is it? Put a smile in your smoking it's as easy as ABC. I can't wait to see what the ABC stands for Hold on.

Because Chesterfields made with accuray are a always milder. Be better tasting. See cooler smoking. Yes, Chesterfield is always I can I could do this forever. I really feel like I've got a job here. All Time Radio ever comes back. Oh, God, I've been doing this for a while. I've wasted your time. I'm sorry. Come back soon for another episode of The Juicebox Podcast. Oh, I did it again, the Juicebox Podcast. Anyway, just there'll be more episodes, please download them. Please. Thank you. Subscribe in a podcast. Thank you until a friend. Thank you. I mean, and leave a review if you like. But only if you really love the show. If you really love the show, wherever you're listening, leave a five star rating and a thoughtful well written and, you know, grammatically correct review that would be really wonderful. Do you want me to ask you with a deep voice again? Are you enjoying the Juicebox Podcast? Go leave a five star review wherever you listen. And you know what would accompany that review? Just nicely. That's right. A Chesterfield King. No, I'm just kidding. A well written review that people could read and see what you think of the podcast. Alright, I think I'm definitely done now. Goodbye.

If you're still here a I think you need more to do with your life like you have too much free time and be I think it's because you want one more ad from Old Time Radio read to you should we go with Should we go with Miracle Whip Cheerios What is this Contadina tomato paste

so much a DuPont chemistry yeah that's funny. Alright DuPont chemistry

Alright hold on a lot of boats there okay I think he says one of the one of the one of the one of the newest this guy's got a mouthful. Buffalo balls. What's he saying? One of the newest of the DuPont companies. Oh better living he's not even it's not the name of the company. He just goes one of the newest DuPont companies better things for Better Living Through Chemistry. That's what he does. He just rolls through it real quick is keel rubberized fabric. This improved in the middle. neoprene rubber. Wow. That's a lot of words to say we came up with a new fabric for your car seat. All right, that one wasn't fun. Find one more hold on Frigidaire Frigidaire, why not frigid. Gunsmoke the TV show? Huh? Frigidaire. While speaking there's nothing to remember about the new Frigidaire refrigerator. This is Wendell Niles speaking Here's something to remember about the new Frigidaire refrigerators made your kitchen made made to fit your kitchen made to fit your needs prior to that, did they make refrigerators that did not fit in your kitchen? Oh Ford Hold on a second

talking about the economy these days when the cost of everything is hilarious these days when the cost is everything is up it's it's great don't afford. afford. Yeah, that's what you need afford. Alright, listen, if you're still here. Seriously, seek professional help. I don't know why you haven't shot this off yet. I'm now wondering why I'm here.


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