#340 Clashes with Pink
Scott Benner
Sixteen year old D'Arcy. has type 1
D'Arcy. is a singer/songwriter who has type 1 diabetes.
App is free & already on your iPhone ⤴
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Pandora - Spotify - Amazon Alexa - Google Podcasts - iHeart Radio - Radio Public or their favorite podcast app.
Check out the Diabetes Pro Tip episodes and Juicebox Docs
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:04
Hello, everybody, and welcome to Episode 340 of the Juicebox Podcast. Today's episode is sponsored by touched by type one, and the Contour Next One blood glucose meter. You can find out right now if you're eligible for an absolutely free meter at Contour Next one.com. And of course to see the great works being done by touched by type one, all you have to do is go to touched by type one.org. You all are in for a treat today. Because Darcy is on the show. Darcy is 16 years old. She's had Type One Diabetes for a year, and she's more mature than 15 Have you all put together? Her story's crazy. She's really confident. And I really, really, really, and I know that they say the best way to communicate is just to say really a bunch of times. But I quite enjoyed this conversation with her. I hope you will, too. Please remember, while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan for becoming bold with insulin.
I wanted to remind you just briefly of a couple of links that I have set up to help you guys. One of them is diabetes pro tip.com. That's where all of the diabetes pro tip episodes that have Jenny and I have them are collected in one place so that it's easy for you to share and revisit. And juicebox docs.com juicebox d oc s.com. What this is, is a growing list of doctors recommended by listeners of the podcast. So endocrinologist, nurse practitioners, people who really get what you're trying to do, and will work with you not fight against you.
D'Arcy 2:08
Hi, I'm Darcy. I'm 16 I'm a junior in high school and I was diagnosed with Type One Diabetes a little under a year ago.
Scott Benner 2:17
Darcy I love that you're here. Okay. All right. Now let's tell me Do you know why I'm so excited that you're on the show? Don't say it if you know why. But do you know why? No. Oh, okay. Excellent. It's even better. All right. Darcy, you are my You are my ambassador in the world. I have found out and I am super excited to find out about how you got to that point. You don't even realize it perhaps but we're gonna get to it. So let's start slow. I guess you're 16 and you were diagnosed like a year ago?
Unknown Speaker 2:49
A little under a year ago.
Scott Benner 2:50
How was that? Did that suck?
D'Arcy 2:52
Um, yeah. It kind of sucked.
Scott Benner 2:57
Were you in school? Or was it the summertime when
Unknown Speaker 3:00
I was in school, but it was the week of Thanksgiving. So I managed to spend my entire Thanksgiving week in the hospital.
Scott Benner 3:09
Did anybody come up to you and say Darcy, you should think of the things you're so thankful for.
D'Arcy 3:16
No, good for you. You don't have any
Scott Benner 3:19
morons in your life. That's excellent.
Unknown Speaker 3:21
Yeah, yeah.
Scott Benner 3:24
So were you a sophomore than Yes, as a sophomore? Well Arden's a sophomore right now. So and now you're a junior. Yes. Look at you. You're almost done. The High School thing. I don't like to think about it. But yeah, it goes by so quickly. How'd you do on your PSAT last year? Pretty well? did pretty well. Yeah. Good. Good. Is your mom making you take a class? Or are you just working on your own?
Unknown Speaker 3:50
She offered the class. And I think I think I'm going to take her up on that offer.
Scott Benner 3:57
What kind of Do you know what you want to do in college?
Unknown Speaker 4:00
Um, I don't know. But I've thought about becoming a dietitian, and getting a certificate and diabetes nurse education. However, I'm still kind of on the fence of whether or not I want to kind of completely delve into that realm of diabetes.
Scott Benner 4:25
So I know some people who have diabetes will also help people with diabetes. And they're very great at their job, like really wonderful, but sometimes in the in the background, they'll say, Wow, my whole day is Yeah, is diabetes. Like I don't get any break from it. So it's something to consider. And at the same time, if you're really passionate about helping people, you're going to have an insight that a lot of people wouldn't have. Right, let's go and by the way to Darcy, and I'm not your dad, you know that you probably have a father. But you shouldn't really know what you want to do for the rest of your life when you're 16. That's up. A weird idea. Yeah, it's not 1920 get out. I mean, you're right, you're right. I think I like Bill, and we're gonna buy a we're gonna get a house and I'm gonna make six babies, and then we'll probably die in our 40s. Like, it's not like that, right? Yeah, you don't really need to know, right today. Arden once said, um, she's like, She's like, you know, if it was a long time ago, I'd probably be married already. I was like, it was a long time ago, you'd probably have a baby already. And she's like, Oh, my God, really? And I was like, see? Is it better being alive now? And she's like, absolutely. So yeah. So I just think, you know, it's of course, unasked for advice. But I even my son's a sophomore in college right now. And I think he's just about to commit to a major. And, you know, we send them off to school. We're like, Look, there's things you're good at, and there's things you're not and go figure out what all those things are. And, you know, just don't wait too long and then pick a path but you don't need to. It's It's weird to think that you're gonna Yeah, exactly. Now, did I see before we turned off the off the camera, that you're a redhead? Is that natural? Yes. Okay. Yes, it is. Is ginger offensive term?
Unknown Speaker 6:10
I don't think so. I know a couple of gingers who get offended by the term. But I've never had a problem with it.
Scott Benner 6:18
Gotcha. I just don't know. Because I see people use it within their friend group. And it seems to be very friendly. And the red and the red head in the scenario always seems to take it well. But then I sometimes hear people say it, I think is this something people don't like? So I'm just I'm trying to find out for myself so that I don't misuse it and you're young. So you understand how the world works better than I do. So I just needed to get that.
D'Arcy 6:39
Yeah, definitely.
Scott Benner 6:40
There's nothing better. It's just like, well, Darcy's here, she can help me with some of my personal stuff. Okay, so when you're diagnosed do they give you? I mean, what kind of gear? What do you go home for leftovers? Do you have like injections or pens or pumps? or What did they give you?
Unknown Speaker 6:56
They gave me a box of syringes. A vial of humor log and a vial of lantis. They wanted me to use those vials before I started moving into the pens. But I definitely didn't do that. As soon as I started leaving the house and bolusing outside of my house, I was I was using the pens, because I thought that using the vials and syringes might look a little strange. So you were you were
Scott Benner 7:23
that's interesting to know. So you were a little put off by what we'll call the sketchy nature of those little plastic syringes. Right? visually, you were just like, I don't look, I don't want to do this. Right. Interesting. Interesting. I, I can't say I disagree. They are very, um, they feel like 1970s television while you're looking at them. And yes, and you've got to carry the vial with you. And then you've got to keep the vial safe. And so all that kind of came into play I got Yeah. So you went right to your pen?
D'Arcy 7:51
Yes. And what are you using right now? I use the Omni pod right now.
Scott Benner 7:56
Very nice. When did you make that switch?
Unknown Speaker 7:59
I made the switch. About five months after my diagnosis. I went to a pump training class made the decision to choose the Omni pod. And probably a month later, I was all ready to go. I was using the PDM to Bolus and it's really amazing how much easier managing your diabetes is with a pump.
Scott Benner 8:25
Yeah, no kidding. And and you found the transition from the pen to the pump not difficult.
Unknown Speaker 8:32
It was a little strange to get used to. But I think that by the time I was ready to transition to the pump I was so I was so ready to not give myself the shots four times a day five times a day. And I was ready to just deal with inserting a canula once every three days and then be done with it.
Scott Benner 8:54
Were you honeymooning in those first five months? Do you
D'Arcy 8:57
know? Yes, no. Are you still? Yes, I am. Yep. Very nice.
Scott Benner 9:03
And is it chiseling away or is it holding on?
Unknown Speaker 9:08
It's it's holding on. I've, I've haven't really experienced any symptoms of you know, leaving the honeymoon phase, I take about nine units of insulin of basal insulin a day. So I'm also trying to kind of prolong that honeymoon stage by keeping my numbers in range and staying
D'Arcy 9:32
within the Dexcom parameters. Gotcha. Where do you have them set up?
Unknown Speaker 9:36
I have them set at 70 and 130. Where did
D'Arcy 9:39
you get that idea from? I got your I got that idea from the Juicebox Podcast. Okay, we'll get you I like how you branded your answer you didn't have to.
Scott Benner 9:52
So is your honeymoon situation that that you just aren't using as much insulin as you feel like you would be or is it that some days, you just don't need any at all. What's the breakdown? How does that work?
Unknown Speaker 10:05
I, I've talked to a couple of my friends that are also type one, and I've asked them how much basal insulin they take. And they say that they take about 34 units of basal insulin a day, which I knew would probably kill me.
Unknown Speaker 10:23
Think if you're using nine, it would Yeah, yeah,
Unknown Speaker 10:27
I definitely there are definitely days where I need to use less insulin, or there are days where my blood sugar will just kind of stay, you know, really close to 70. But there are also days where my blood sugar will stay really close to 130. And so I'm trying to just, you know, predict as much as I can predict how my blood sugar is going to react that specific day. And I'll kind of base how much bazel and set up insulin, I'm going to take that day off of how my blood sugar's have been reacting, you
Scott Benner 10:58
haven't had any situations where like you make a bolus that you expect, and then suddenly, you're incredibly low or something like that.
Unknown Speaker 11:05
I have not had that happen yet. And I hope that it doesn't happen. But if it does, I will be ready for it. Good show. Why are you so
Scott Benner 11:16
smart? So let's figure that out for a second, right? You're 16 people are always like, Arden should come on the podcast. If Arden came on the podcast, she would sit here and be like, I don't want to talk about this. And So wouldn't it? Maybe that's just because it's my bad guess. But what, how did you pick this all up so quickly? Like that? Here are my guesses. Your parents are terrible people and you knew you were on your own? Is that one of the possibilities? Maybe but we're not sure we'll find out in a second. Your parents are really great people. And they've instilled a feeling of confidence in you as you grew up, and you're like, I can do this. Or you're like a weirdo type A, and you don't want anything to go wrong. Like I can't figure out which I'm dying to know which one it is. I'm assuming it very well could be none of what I've just said. But why is it that you? Like like you, you're managing this by yourself? Is that right?
Unknown Speaker 12:07
For the most part, yes. During the waking hours, I am pretty much independent. But my parents are amazing people. They that you didn't trust nothing like they're No, they're not de drinkers. No. So I, I was pretty much as soon as I was diagnosed, I didn't think of managing my diabetes in any other way than just facing it head on. And, you know, thinking to myself, well, this is something I'm going to have to deal with. And I'm not gonna, you know, let it take over my life. But I also want to make sure that I can live a long, happy, healthy life. Um, so
Scott Benner 12:52
so I'm sorry, but that was an immediate thought to you like i, this is got a lot to do with my my long term health success. You knew that right? You knew that right away. Right? Did someone tell you that? Did you Google it? Did you just didn't seem like common sense.
Unknown Speaker 13:11
It just kind of seemed like common sense to me. I mean, I didn't know what damage had already been done. My a one fee was 18 when I was diagnosed. So I wanted to kind of I wanted to keep my body in check at least as much as I could to kind of compensate for any damage that could have been done before my diagnosis.
Scott Benner 13:33
Prior to the diabetes. Were you like, was that a focus of yours? Or were you just kind of rolling along like a regular kitten?
Unknown Speaker 13:40
Oh, yeah, I didn't really give my health much thought until I was diagnosed just because I had never had to give my health much thought my body just kind of worked. Yeah. And then whenever it didn't, it became one of my top priorities.
Scott Benner 13:57
Yeah, I guess a computer user would say that before diabetes, you were like an apple computer. And now you're more like a Windows? Absolutely. I've just offended everyone who uses windows. That's really, that's really amazing that it hit you that quickly now? No. Did you have any depression anxiety? Like, did you like did you have any real like turmoil around the diagnosis at all, I
hope you can take time to go to touched by type one.org and look into their programs. They have annual conferences and awareness campaign, they do this great bowling event. There's of course, their dance program. They're huge dancing for diabetes show and the D box that they send out to newly diagnosed people. So head over to touch by type one.org find out about their story, maybe even consider supporting them. It's a great organization touched by type one.org And then of course, you need a blood glucose meter that is equal to your wonderfulness. Imagine you walking around just delightful. But you got a blood glucose meter that's only so so huh? Doesn't that's not okay. Go look in that bag of yours reach into your pocket. How long have you had that old tired meter using right now? Is it even anywhere near cutting edge? Is it giving you the best results that you possibly could get? I'll tell you right now if it's not the Contour Next One, I doubt that it's as good as it could be. And you can find out simple right Contour Next one.com you can hit the button right at the top of the page to see if you're eligible for a free meter. If you're not, you know what I'm saying? meters are not that expensive. Ask your endo say look, I'm walking around with this old busted down meter forever. I don't even know how accurate is I want to be I want to be doing the best I can do for myself. Why don't you get me one of those Contour Next One blood glucose meters and your doctor will be like, I like you, you know what you want. strong and confident I of course will do this. And that'll be that. That's how I imagined it going. I don't exactly know how it's gonna go. Your doctor might be like, leave me alone. But I mean, if that's the case, get a new doctor. Anyway, the Contour Next One blood glucose meter has an amazing app that goes along with it. You can use it if you want to, if you don't want to, you're not forced to. But it's amazing. Bluetooth enabled, you check your blood sugar shows write up on your app, you can keep good track of more than just your blood sugar, you really have to go check out the meter. And that to find out if it's something that you would really benefit from, but I think it I think it is that's available for Apple and Android. So again, go to Contour Next one.com learn all about it. There's this beautiful color coding system for your testing. I love the screen, I love the size, it feels good in my hand, right? It's not too small, not too big. I don't drop it. And the test trip is remarkable. The accuracy is nuts. But you can actually go in and hit a blood drop and miss it a little bit and go back again and not waste this trip. Right second chance. There is very interesting information at Contour Next one.com about the accuracy of the meter. But as I read it, I recognize that I am not smart enough to make sense of it and translate it here for you. So you really should go check it out for yourself. All right Contour Next one.com touched by type one.org. The links are in your show notes right there in your podcast player there at Juicebox podcast.com. You can just type them in yourself. But when you use my links, the advertisers know you came from here and that I appreciate extra monthly. Are you ready for Darcy Darcy isn't even going to tell you why she's on the show for like another 25 minutes. I just love this conversation. it unfolded gently. Any good story unfolds gently.
Unknown Speaker 17:57
My opinion
Scott Benner 18:06
you have any real like turmoil around the diagnosis at all.
Unknown Speaker 18:10
I did it. I didn't take it very well. The first couple of days I was in the hospital. I had many just kind of meltdowns where I would lock myself in our in the in the hospital rooms bathroom with my huge IV tower that I named Cletus and I would just sit on the floor and cry. But it didn't take me very long to adapt to the new lifestyle. Because I had a really good friend who was also type one who ended up visiting me in the hospital. And he he would just be like okay, Darcy, you're gonna you know, you're gonna sit down at this restaurant, you're going to check your blood sugar, you're going to give yourself that injection and it's going to be totally normal, because that's just something you have to do and it's not your fault. And having that probably made the whole situation a lot better. I would say
Scott Benner 19:12
a good friend. So you So you knew somebody with type one before you were diagnosed? Yes. Do you live in a hotbed of Type One Diabetes is like every other kid type one in your town? Or is it just a random thing that you knew somebody?
Unknown Speaker 19:24
Pretty much honestly there. I think there are 12 type one diabetics in my school last year. And my school is really tiny.
Scott Benner 19:33
Or you guys like real close to like an electric line or like I don't know, that does it? But like something like, you know what I'm saying? Like, you know, when you drive past those big electrical lines, there's a house next to it. You think? I don't think I would want to live right underneath of that giant tower of electricity. Yeah,
D'Arcy 19:46
right. Absolutely.
Scott Benner 19:48
I live in a reasonably small town too. And there are a number of kids in art in school prior to her being diagnosed. And that number is sort of trailed off of Little bit now, but there's still a couple that come every once in a while it does make you think like, you know, I mean, I'm not I don't know, but, but it's interesting the water. Yeah, exactly. It's simple water. Maybe he, maybe he dosed you with diabetes so he'd have, just do that to somebody. But that's very nice. Your age somebody you knew before a real friend, not like a not like a boyfriend prospect.
Unknown Speaker 20:27
Um, friendship kind of trailed into something else. But he's in college now. So that kind of trickled off. Yeah.
Scott Benner 20:37
Oh, well, that's nice and good. At the same time. Let me tell you the same thing. I told my son when he left for college, better not to go with a girlfriend. Just you know, for you as well. You don't need to be like, limiting your happiness to like when whenever this guy comes home every once a night. Yeah, it's not you.
D'Arcy 20:54
I agree. Absolutely.
Scott Benner 20:55
But so you found a real like, your bond, like your friendship bond really became deeper around the diabetes.
Unknown Speaker 21:01
Yeah. And I think the fact that we had already we already knew each other so it wasn't like, he was like, Oh, you have diabetes? Cool. Me too. Let's be friends. We had other we had other things in common before my diagnosis.
Scott Benner 21:15
Any chance this kid used your diagnosis with Type One Diabetes to hit on you? Yes or no? Because guy I really hope not guys are ruthless. He might have been Finally I can get with this Darcy girl. And like, I've got like an in she's probably sitting on the bathroom floor in a hospital goes. By the way. Did you never once when you're on the floor think there's a worst disease on this floor than the one I've just got got on my.
D'Arcy 21:40
Well, the floor I was on was specifically for kids who had been diagnosed with diabetes, if they clean that floor better.
Start a long pause. I don't know.
Unknown Speaker 21:54
I don't know that you
Scott Benner 21:56
were so much stronger. Of course, you were so distraught, you didn't consider that perhaps you shouldn't be sitting on the bathroom floor in a hostel. Next, next time you're in the hospital, please stay off the floor. I don't care what news they give you just you know, up on your feet. Okay, I went, I went to visit my mom in the hospital the other day. She's fine, by the way, don't worry about and I came home afterwards. And it was a long day. And I sat on the sofa and went to put my foot on the coffee table. And I stopped myself from that I was like, I don't know what is on the bottom of my shoe. And so I just got you down there and that like paper gown, like with a hole stuck in your arm crying on the floor. And then this kids like who have always wanted to go out with a ginger. And like, you know, maybe, maybe this is it. Anyway. It sounds like you're doing better now. But I think it's also important that, that you just had your feelings when it happened. Like your parents didn't try to like pull you out of that bathroom. They just kind of let you be.
Unknown Speaker 22:54
Yeah, yeah, they were. They were always they understood that I was going to be upset. But there was one point in time where my dad came in and he was like, You know what, it doesn't matter what we have to do. We're all willing to make the lifestyle changes to accommodate for you and your needs. Don't ever think that like this is something that you're going to have to deal with on your own. So they were they were really supportive. But there are definitely a couple of times where I just wanted to be alone because
Scott Benner 23:26
yeah, it's good. I think both sides of that sound really amazing if that sounds like a good guy. Do you have other brothers and sisters?
D'Arcy 23:33
Yes, I have an older brother.
Scott Benner 23:34
Okay. And is he still in the house? Where is he off of college? He's in college. Do you think it's possible that whatever's in the water causing everyone's Type One Diabetes is also making everybody in your town really nice. It's possible maybe it's a nice thing that's just a side effect of it anyway, I you know there's one conspiracy theorist listening to the show right now it's like I knew they could give you type one you really can't people just it's not how it works. But but so I like this now you out out of the hospital. You're bucking the system immediately right? Oh, homeless. Yep. What is art insane to me.
Unknown Speaker 24:11
Okay
Scott Benner 24:13
sorry, where she had a tiny low and I just asked her how long did you eat that candy and she responded with a very helpful when you told me since you told me I was looking for more of a time frame but you know I'm sure it's fine. Her blood sugar 74 I think she's gonna be okay. Is it gonna go up again? Darcy I wish you could see this you could help me because you're so good. able to tell me I'm gonna have her have two more of these little candy things. Anyway. So you're you're out of the hospital. I like immediately your attitude right? Like this is not this is what they told me to do. But this is what I want to do and and you went right to it. I think that's a really interesting look into your probably your personality. And probably an interesting look into why you're doing so well immediately because you are really kind of Following your nose on this right doing what you think yeah. Yeah, that's excellent. So when do you find the podcast? How do you How does a 16 a 15 or 16 year old person living like what part of the country and don't like tell me the town but like, in the Midwest, it was so you sound Midwestern. And so did you know that sounds like something?
Unknown Speaker 25:21
I've heard that it sounds like something but I don't believe it.
Scott Benner 25:27
It sounds American is what it sounds like. It sounds like, like an average accent. So. So you're in the Midwest somewhere. You're You're out. You're doing your thing you get on the pods really quickly. When do you find the podcast? Like how do you find it?
Unknown Speaker 25:41
We'll say that my mom is just a really good planner. And she's already you know, getting ready for me to go off to college. And she finds your, the, the interview you did with Maddie. And then she like hey, Darcy, I found this podcast. And in towards the beginning, I was kind of reluctant like, Oh, yeah, I definitely want to sit and listen to but like, listen to a podcast about diabetes for an hour and a half. But then I actually listen to it because my mom knows what she's talking about you trust your mom. Yeah. trust my mom. And I listened to your pro tips episode about the CGM. And I was like, Whoa, this makes a lot of sense. Because at that point in time, I had my dexcom alert set at 80 and 200. And I found myself going over 200 at least once every other day. And then I tightened them to 170 down to 151 4130. And it it's really made a difference. I don't I very, very rarely go over 200. Now, homecoming was this weekend, so that there was there's a bit of a slip up there. But we, we Yeah, we've just been able to manage everything 10 times better. It's it's so much easier now that we have not only you and Jenny, but you there are other people that you've interviewed that kind of give their two cents on how they manage their diabetes, and getting all of these different perspectives on how all of these people manage their diabetes has, has made it honestly, more fun to think about, oh, if I eat this food, how is this going to affect my blood sugar? If I eat this? How fast is my blood sugar gonna spike? How far in advance Do I need to Bolus before I eat this food?
Scott Benner 27:50
Darcy, I don't think I can use the Juicebox Podcast makes diabetes fun as a tagline. Because I think a lot of people and I wouldn't want to do it. But I'm really encouraged that you said it would not be a T shirt that no one would buy. Anyway. That's a really, that's really amazing. Like, I'm thrilled for you. It's very cool to think that I did something I had an idea for. And it actually kind of came to fruition halfway across the country for you. It's very cool. But I also can't imagine what it's like to be 16 years old, and have your mom come to you and say I found a podcast, you should listen to that alone. Before you figure out it's diabetes must have been horrifying. Like oh my god, my mom is gonna try to pick a podcast for me to listen to what could I possibly know about podcasts? And then it's about diabetes. I would have like, I would have run away if I was you. I would have like I didn't let my mom pick anything about my entertainment when I was 16. Why do you think it's entertaining? Is it because I'm terrific? or What is it? exactly do you? Well, I
Unknown Speaker 28:58
I definitely think that you are terrific. But I've always kind of at least once I got my Dexcom in my Omni pod and I had a better handle of what my numbers looked like, you know, and a 24 hour span. I I realized that I wanted to I wanted to not only take care of myself, but I wanted to understand why I was taking care of myself how I could take care of myself. And that was something that I was having a little bit harder time getting a handle on. But then I start listening to your pro tips about bumping nudge and Pre-Bolus saying and you know being bold with insulin, and it just made it a lot easier to grasp and understand this is this is what is going to happen if you do this and this is why it's going to happen. So you have a better you have a better shot at accurately predicting what is going to occur when you eat or when you exercise or when you have adrenaline running through you.
Scott Benner 30:06
It's definitely my finding. So it's very cool that you found it the same way. Have you been proselytizing to your other myriad of diabetes friends and your diabetes written town? Or do Is it weird to go to another 16 year old and go? Yo, do you want to hear about a podcast about diabetes? I think you would enjoy. I, I'm interested, like, would you tell somebody else? Or is it sort of like your own thing?
Unknown Speaker 30:29
It's, it's kind of right now, at least it's my own thing. But I recently did an interview with one of my, one of the other diabetics in my school, and I mentioned it, and my dad actually right into him on the golf course, and mentioned it. So I think he's now listening to it. And he said that his he's lowered his Dexcom alerts. And he's, you know, trying to do a better job of managing his numbers and all that kind of good stuff.
Scott Benner 31:05
Thank you, Father, for me, tell me they're telling there's no referral program. So might be sending him a check or anything like that, but I really do appreciate it. And no, I really was asking not because I'm expecting you to get off of this and run around town like Reno right now, like yelling, like, you know, bring out your type on diabetes. So I can tell you about a podcast. But but because I was interested in if it felt really private still, like if it was your thing, like or something that you just wouldn't want to tell someone about? I had a conversation yesterday with someone who told me that there's things about their diabetes, they don't share with anybody. And it surprised me to a certain degree. Like I really thought like, well, that's strange. Like even with the people that are closest with their stuff about diabetes, they just don't share with other people. And I understood while this person was telling me that I just for me, personally, it seems strange. And then I realized to them, it seems strange at how sort of open Arden is about it. And I'm always interested to know, like, where people fall in that category, because I think you're going to have a, a more successful psychological, like health. If you're not hiding things, like whatever, right? You don't I mean, like, if you were running around dyeing your hair black, because you don't want people to know you were a redhead. I think that would have, like, seriously, I think that would hurt your soul a little bit. And and if so, Oh, okay. I didn't know what I didn't really request you were in. But now I say. But you know what I mean, like that, like, I don't think it's, it's not healthy to hide who you are. And at the same time, I get it, if that's how you feel. So yeah, it was just interesting.
Unknown Speaker 32:43
I understand that to a certain degree. I mean, whenever I was first diagnosed, I was incredibly embarrassed to have my alarms go off in school. so embarrassed that it would get to the point where I would plug my headphones into my phone. So I wouldn't even hear my alarms go off. Because I didn't want people to think that I had maybe forgot to turn my ringer off or that I had forgot to put my phone on Do Not Disturb. I just didn't like the fact that my phone was constantly going off in class, because at that point, I was still kind of getting a handle on it. I was still on MDI, right whenever I first got my dexcom, so I had a lot less control over how much insulin was going into my body and at what point in time is going into my body. So getting the strange looks from from people who just don't know. They don't understand they don't understand how diabetes works and how sometimes you can't control what's going on with your blood. sugar's if you have an off day, or if you've eaten something that you didn't bolus correctly for, and you bought them out. And your your alarms go off. That was something that I was really, I was, I was embarrassed. And I didn't want people to think that I was, you know, and consider it because my phone was going off in class.
Scott Benner 34:05
But now it's kind of getting to the point where I'm like, well, yep, this is something I deal with. And you know what I kind of I have to live with this. You can deal with the alarms going off in class once a week. It's not the worst thing. You make me think about. I think last year going into Arden's like freshman year, we have a meeting with the teachers usually, where we just sort of explained to them like look, you know, Arden doesn't manage her diabetes the way a lot of other kids who may have known who have diabetes do and you know, we give them kind of a quick overview. And one of the teachers says, I have a strict no cell phone policy. Everybody comes into the room puts their cell phone into like a shoe tray on the door. And I see Arden can't do that she's gonna keep her phone. And she was What will I tell the other kids and I didn't miss a beat I said tell them that they want to get an incurable disease. They can keep their phone with them too. And yeah, like and if they don't like if they don't want to go to that part just to have their phone in their pocket. Then tell them to shut Shut up. And not saying it. Like, seriously when someone comes to you and says, This is not fair, literally just look at them and say, shut up and sit down. Like like, what? Yeah, what are you gonna tell them? Like? Where did How is the world turned into a place where everybody gets an explanation for everything all the time, like, this is the role except for her if you don't like it, I don't know what to tell you. And and, and, and meanwhile, that was never going to happen. Because everyone Arden has been in the school forever. Everyone knows she has diabetes, like no one's gonna begrudge her having her phone so that she can see what her blood sugar is. It was just as a concern that the teacher had that ended up not being an issue at all. And I don't know, I just think you should, you should always value your health over what anybody thinks. Absolutely. And you came to that on your own to you really are like a perfect kid. So, and we're gonna prove that as we continue to talk here, even with something I don't even think you yet understand why I'm so excited that you're on the podcast, though. Plus, by not talking about it up front. I'm teasing people out in the world, listen to the entire hour, right? You see what I'm doing my guess. Right? Yeah, thank you. Thank you so much. People, do you think someone right now is like, oh, and just shut it off. Like, I'm not going to be manipulated like that I'm not. You just you don't want to, like, you know, you know, you don't want to just sell out in the first couple seconds. Plus, you have an interesting story, you have a really great perspective. And I'll tell you one thing that I really love about your perspective, and that I want to talk about now that I've already considered talking about before, the reason why I'm very excited that you're coming on is that you are of a generation that is sort of unlike any other in history, right? And I'll tell you, I'll tell you why. And I'm hoping your generation doesn't fall apart and let us all down when I'm really old. Because
Unknown Speaker 36:45
hopefully not
Scott Benner 36:46
well, trust me. You probably will. But I hope you don't. Because if you if you look at the baby boomers, right, the baby boomers are in charge right now. I don't know if you know what that means. Like, it's that Yeah, after the war, right? Like, you know,
D'Arcy 36:56
right? We're like, oh, you're still
Scott Benner 36:58
alive sex and then babies. And then boom, you understand how it goes? You met that guy? And so, right. Okay, so that happened, right? And, and now there is this, like, you know, generation of people who were all born around that time who came up the children of, you know, people who had lived through a World War. And right, they kind of came out a little differently, right, they came out a little more relaxed, the hippie, you know, the hippies were sort of in the 60s, part of those baby boomers. And, and, as an onlooker, you know, somebody who was born a number of generations behind them, I thought, these are the people who are going to change the world. Right, right. They're their hippies. They saw Hendrix at Woodstock. They're going to be the ones except now look what's going on in the world. They completely reverted back to being old fogies and just completely stopped. They forgot what they learned when they were growing up. Right. So I don't want that to happen to your generation. But your generation has something I think that no other one has had before you are treated. Like your thoughts are important at a young age. And I know that sounds crazy to you. But when I was 13, no one cared what I thought. Did you know what I mean? Like the teachers didn't care? Yeah, you know, nobody would have said to me, but Scott seems upset that he can't keep his cell phone when Arden gets sick, like no one would have had that thought, you know, right. And so you guys are better educated, you're more emotionally supported. Your your, your have a better feeling about your self worth. You're more free to be yourself, right? Like, we're not busy telling people anymore. If you're gay, don't tell anybody if like nobody says things like that anymore. And right. And so you guys are probably the most fully formed young people that the planet has ever seen. Yeah, right. Do you agree with that?
Unknown Speaker 38:49
I agree with that. I think that
Unknown Speaker 38:52
especially with having diabetes, I, whatever parts of me weren't as mature, were able to, we were able to mature a lot faster, just because now I have my own life in my hands. As does everyone else, but I think my, my life is a lot, a lot more shaky. But I also think that that's also it's also kind of sad that I mean, my mom talks about all of the things that she did when she was a kid and she talks about how, you know, in middle school, she would go out in the summers and she would ride her bike around town and she would hang out with all of her friends. And and like after, of course, after she did her paper routes because she was she was really she was a hard worker. Anyway. But, and I and I think that now a lot of teenagers are kind of expected to grow up a A lot faster. And maybe that's just my opinion. But that's just something I've noticed, at least among my friend group.
Scott Benner 40:08
I agree. And at the same time, by the way, we're doing well, I'm doing Arden's lunch while I was talking to I apologize, but I heard everything you said, at this podcast at this point, like I can literally do, and think about something completely different at the same time. Arden is buying lunch for the very first time in her life today. I that's weird. Laos has never bought lunch at school. So we did a, we did a 30. But we did a six, let me suddenly think 3612 eight, we did a five unit Pre-Bolus right now and then she's going to actually tell me what she got. And then I'm going to try to help her figure out how many carbs are there? Because she doesn't know what I don't know, either. Anyway, that'll be in a second. I agree with you. And I don't agree with you all at the same time. So yeah, I know, your mom had this, like laissez faire life, right? Where she was just like, I'm young, no one expects anything from me. And so if I have a paper route, and then go play with dolls for all day, or go to my friend's house and pet her dog for six hours, because we don't have a cell phone, and I don't know what else to do. Like, like, then hold on a second.
And, you know, if I'm just gonna have a little more, so that was the life right? Like, like, it was easy, you just your expectation was, don't draw on the walls, don't cause me any problems. Listen to me, when I talk to you, you know, like, Don't make me chase around the town. At the end of the night, when it gets dark like that, I get that like, but you didn't learn anything about the world, either. You just were out there, like, you know, figuring out how not to like, let the creepy guy up the street, see you on your bike. And you know, and stuff like that, like I get that there were lessons in there. But I also think that when you look back when you're 30, you don't really remember all of that in the same way that you think you do. Like, do you mean like memories are really interesting, they don't, you'll have a few that are really strong, you'll have a couple that are really enduring. That means something to you. And then the rest of those hours are just gone. You know, you don't you don't it's not like you're drawing on them every five seconds. You guys are doing stuff like you're learning things. And, you know, you're probably in a math. Right? What do you take? Right? And I don't even know if you're a good student or not. But what math class you Yeah,
Unknown Speaker 42:30
I'm in an honors algebra two class.
Scott Benner 42:34
Exactly. There are people listening right now who are like, I took that in college, you know, seriously, or I never took that till I was a senior or, you know, we're there are people listening right now that are laughing go, Scott, I never took algebra to once in my life, let alone anonymous class. So you guys are you're advanced in that way. There's no real way to know what that's going to provide for you 20 years from now, because we haven't really seen a number of generations do this yet. All right. I was sitting at lunch with someone this week, who hadn't seen in a while. And they said to me, you know, how's coal? And I was like, Oh, he's good. You know, blah, blah. He's a college and you know, that kind of stuff. And he goes, so what's he majoring in? And I said, Oh, he's quantitative economics major. And the guy looked at me like, what does that mean? And I had to say to him, I don't really know. I don't know. But he's really good at math. And he likes it. And so I don't think that if I would have raised coal 40 years ago, he'd be a quantitative economics major right now, I don't think that would even be something that might, you know, exist at a school. So I'm, I like, both sides of it. I also think that you're going to make better decisions moving forward, because you're a more fully formed person. Like I think someone like you is less likely to do something incredibly stupid like with recreational drugs when you're 19. Because you actually think about things. Yeah, you know what I mean? Like, everything's not I mean, how you more from the girl crying on the dirty bathroom floor to who you are now. is astonishing. Like it really is. Thank you. You're very welcome. But, I mean, it's, it's an amazing thing. Like, I'm not hearing anything in you. That's like, Oh, she's pretending to be together. Or, you know, break right now. She's just looking at her heroin needle waiting to get off the podcast. Like, like, like, like, you really see him. Okay. You know what I mean? And so that is that's for me. You live in the Midwest, and you're not doing math. I don't know that. They tell me a miracle. Tell me in the news. That's a miracle. So I only know what I see on the news. Anyway. It accurate. You know what I really I have to stop joking around like this because sometimes people get upset. I don't think everybody in the Midwest is doing math. Please. I'm sorry. Just trying to joke around with a 16 year old I'm trying to keep up with a with a with a person who's got an advanced idea of the world. Do you know how many 62nd videos this girl's Washington her life, she knows more about the world than you ever will. Right? Isn't your life just like scrolling through Instagram watching everyone else live? 45 seconds at a time?
Unknown Speaker 45:12
Oh,
D'Arcy 45:14
that's a good chunk of it.
Scott Benner 45:20
Yes, a large chunk of my life actually. I've seen everybody who's ever jumped off a roof of their building into the swimming pool and hit their head. I know everybody who's ever danced awkwardly in front of someone. Every Russian traffic ham accident in the world? Is everyone in Russia have a traffic jam on their dashboard? What are they expecting that one? Maybe I don't want to know what they're expecting to have happen. But anyway, they're, they really think something bad's gonna go down and they want everything on video. But yeah, you're you're you see more, you know more, there's no real way to keep anything from you. But that's that's an interesting part about about parenting young people now is that you can say to yourself, I'm going to make sure they don't find out about this, you're not making sure anybody doesn't find out about anything.
Unknown Speaker 46:07
Right. And sometimes that's a good thing. And sometimes it's a horrible thing. Because I mean, there are definitely aspects of Twitter that I never want to be a part of. But it's so easy to come across, like all of these people who are either really hateful or just stupid. And so you're either you're either able to base your own opinions off of the information that you're obtaining from the media, or your, you know, being informed of things that either aren't even real or aren't 100% valid.
Scott Benner 46:43
Yeah, I mean, to your point, like somebody, I saw some posts the other day where a guy was just like, just remember, when you're judging yourself against somebody's Instagram picture, that was the 13th time they took it, they until they could get themselves looking just that right. You know, and don't judge yourself against what somebody throws up on Instagram. Or, you know, can I ask you how frequently as a 16 year old in your delightful, you seem like a really nice kid. So how often do you see something on your phone that you think Oh, I wish I hadn't saw that.
Unknown Speaker 47:14
Um, I'm pretty good at guarding myself from the things that I don't want to see. Um, but there there are definitely times where I'll see something about something that's going on in the world that I might not agree with. And I'll be like, Oh, I really wish that I didn't see that. Because now I'm upset about it.
Scott Benner 47:35
Yeah, it because it makes you feel like he can help right? Makes you feel right. I was thinking more about like, some sexy thing where you were like, Oh, I wanted to do that with another person. not see it on my phone. But I'm assuming that happens, too, right? Like, we don't know that your mom knows that you have a phone? It's okay, she understands. But I really didn't think about the fact that your mom's gonna listen to this when I when I asked you. Yeah, I apologize now. Okay, so the reason you're on the podcast, is because you did something that I really appreciated for a bigger reason than just you and me. So I really I say it here a lot. I don't know how much people believe me or not. But I have a goal, right? I don't know if it's pie in the sky. It's something I'm never really gonna attain, obtain. But I would like very much that when I die, I would like somebody who has diabetes, who I've never met before, to show up at my funeral and say, that guy helped me live a healthier life. Like that's like I want that to spread, right. And I don't think it's something that I can spread by myself, I'm doing a pretty good job. But I think it's going to take people telling people, and more importantly, it's going to take people going back to their health care providers, and being honest with them about what they're doing. And so I am really interested in your last appointment, where you went in and got your a one CD, would you share it with me?
Unknown Speaker 49:00
Yeah, um, so I went in for my quarterly appointment to my endocrinologist office. You know, they weighed me, and then they did the a one c test. And my mom and I are patiently waiting in the room thinking, Oh, is my agency going to go up? Is it gonna go down, it's going to stay the same, what's happening? And so my endocrinologist walks in, and he goes, Well, good news, my, your agency is 5.6. And so my mom or you know, throwing air high fives at each other, because I thought that it was going to go up, but it had stayed the same. So he then starts giving us what my mom and I like to call the low lecture, saying, you know, an A one sees a 5.6 is really good, just as long as we're not experiencing that many lows and we want to make sure that we're staying above 70 and that we're not, you know, dropping into any dangerous, you know, dangerous water where you know, glucagon might come into the picture or something like that. And I was like, Well, I don't think I'm really having that many lows. And he goes, Okay, how often do you think you're having lows? And I was like, oh, maybe I mean, maybe once every other day if that, but I mean, at that point, they were, like, maybe dropping as low as like 65. But that's, I would catch it by the time I would, I would drop that low. And I'd get back up to 7580. And then he looks down at my dexcom clarity. graph. And, and he he's like, Wait, you're only above 200, once last week? And I was like, Well, yeah, I mean, I, I typically, I don't I don't jump over 200. Very often, I wasn't really fazed by by it. And I didn't understand that he was shocked by it. I just kind of like, yeah, that's something that's, that's going on. And then he looks down again. And he notices that I hadn't been low, either, that I'd stayed right in between 70 and 130, pretty much consistently that week. And whether that was just a really good week, or that's what my numbers run consistently. I'm not 100% sure of, but he was just amazed by it. And he started to ask me how I did it. And I was like, well, I listen to this podcast
Unknown Speaker 51:25
that my mom found. And
Unknown Speaker 51:28
I started going into how I had learned about Pre-Bolus saying and temporary basals and adjusting my bazel rates and how fats affect your blood sugar, how it can prolong a high blood sugar and how adrenaline can affect your blood sugar because I had no idea that adrenaline adrenaline could affect your blood sugar. I didn't know that an extended bolus could help with you know, like bringing down a high after eating half a half a pizza by yourself. Like I, I didn't know about that kind of stuff until I listen to the podcast.
Unknown Speaker 52:10
And he starts going through my my Omni pod
Unknown Speaker 52:14
my Omni pod bazel Records and I have four or five different bazel options. And I have some kind of crazy complicated, different like, timed out schedule of when I'm getting point two units of insulin than when I switch to point three than point three, five, then point two, five. And he's like, well, I never really thought about making something this complicated. And I was like, well, this is just what works for me. And he's like, Yeah, no, absolutely. If this works for you go for it. Then he goes, what kind of marks Do you get in school? And I said, Well, I'm not too good at math. And of course, my mom backs me up because she's she's, she's, she's really encouraging me doctor. She goes, she goes, Well, she's in an accelerated math course. And he goes, What do you want to do when you're when you get older? And I said, Well, I I'd really like to be a musician. Because that's, that's what I do. I'm, I'm a musician. That's how I spend a lot of my time I write music and record music. And I have an EP that I just released. And I also said, I've also kind of looked at becoming a diabetes nurse educator, but that's not really something I'm 100% set on. And he goes, Well, what about pediatric endocrinology? I was like what, huh? You actually you actually think that I could do that. And then I remembered, if you want to become a pediatric endocrinologist, you have to take organic chemistry.
Unknown Speaker 53:57
So I won't be doing that,
Unknown Speaker 53:58
which is not a class that I have any desire to take. So I I pretty much shut that one down real quick. And he's like, well, you're a junior, right? Yeah, I'm a junior. So I've got what a year and a half to change your mind. And, and hearing that was was just really interesting and kind of shocking, because I never thought that someone would you know, who was whose, whose job was to, you know, learn more about how to manage diabetes, because he spends most of his time in the research, the research labs because, you know, learning all of these things and researching all of these ways to make diabetes easier to live with. And he is now complimenting me on how I take care of myself, and I've only had diabetes for 11 months. So that in and of itself was Kind of eye opening because I didn't realize how good I was at taking care of myself until he had said that.
Scott Benner 55:10
That's really cool. And it's also a good indication of how, what he must see with other people too. Right? Right that you were he was just like, Wait, do obviously I have to tell you about what happens when you get low. And, you know, your blood sugar bounces all over the place, and you get this false a one C and I have to tell you, it's good, even though it's not but and then he looks like oh my gosh, this is amazing. Well, you know, first of all, congratulations. It's very cool to feel you, you know, to have that feeling. I would imagine I remember the first time I felt that way in an endocrinologist office for art and and I was like, well, I did it. It took me took me years. But you know, like it was, it was an amazing feeling like I actually persevered and got to this your perseverance lasted a little less. But you know, you still have in you're going to see what I think is that there could be people listening right now they're like, Oh, yeah, but sure she's gonna need more insulin six months from now, and she'll say, but what they don't know is your tools will work at any level. Like you're, you're going to be able to put the same ideas in the practice. When you know, other things happen. Like you're 16 you know, you get your period, right? You're controlling it during that time to you're not like you're not like falling apart for like a week and then pulling it back together. Hold on one second. Arden says I got fries. I didn't see your last text. Hmm. All right. What do I ask her here? Darcy? Is it a lot of fries? A lot of fries? Question mark. Poor art. And she's just like, she does not know how to buy food from like school, she has tried so hard not to do this her whole life. And then today, we just left the house too late to get her lunch. And she's like, I'll just buy something and it's like, you're gonna buy like a real meal. And she's like, I'll take care of it that and I was like, Okay, I didn't realize that that meant, you know, like a large. Trying to like, think of a fry size that she's aware of from like, another place. Just to go right away. Are you gonna be okay, talking for a little bit?
D'Arcy 57:16
No, yeah, we're good. Why are you off? By
Scott Benner 57:18
the way today? Isn't it Tuesday?
Unknown Speaker 57:21
Yeah, it is Tuesday. Um, I have anatomy right now. And we're doing our endocrine unit.
Unknown Speaker 57:30
And so
Unknown Speaker 57:33
I managed to weasel my way out of that class with an excused absence. Because I was
Unknown Speaker 57:43
doing it properly.
D'Arcy 57:44
I was doing this and I was probably set on, I was probably set on all of the information that I was going to be taught that day for See, I
Scott Benner 57:52
feel like I'm a really big part of your life. I got you out of anatomy class. I it's it's a big part. I've never gotten anybody out of school before. But I'm very proud of myself. Just now that first time for everything's really good. So you know, your amazing experience at the doctor's office, which I love how like, impactful it was for you. But I also love that you just were like, Yo, I found a podcast. He didn't like lie to him or say, oh, what I've been eating, leave it out. Admit it, you know? Yeah. What did he say? Did he like gloss over that? Or? Was there any, like pushback that it was a podcast? I always try to imagine you guys in your, your doctor's offices telling somebody? Oh, yeah, I heard that on a podcast. Because it sounds ridiculous. It might not to you because you're young. Like but like, I guess it would sound more reasonable to if you're like, Oh, I saw it on YouTube. Like that might sound more like youthful than podcast even. But, but for most people, for most part, I just always I'm trying to imagine what that must be like for someone who says it in there. Like Did you swallow the words a little bit? Or were you just like, right out with it?
Unknown Speaker 59:01
Well, um, I was pretty straightforward. Because at that point, I felt like he was just kind of like, how did you do this? Not like he had never seen it before. But I think he just sees it so rarely that he was kind of surprised. I was like, well, I found this podcast and he was like, Okay, that was it. What a horrible. I mean, he did. He didn't, he didn't really, he didn't say anything like, Oh, you shouldn't be getting information from a podcast, but it was. I think he might have said something about it. If my numbers had been, you know, all out of whack.
Scott Benner 59:39
You're a Wednesday was 13. You're like how this
D'Arcy 59:45
guy's podcast told me the podcast. Oh. I feel like
Scott Benner 59:53
he said eat okra. It'll be fine. You don't need your insulin.
D'Arcy 59:57
Gentlemen, I'm telling you cinnamon. Exactly.
Scott Benner 1:00:00
So, first of all, I don't tell anybody to do anything Darcy, these are my own experiences and nothing you hear on the Juicebox Podcast should ever be considered advice. But the point is, is that it, it's cool that you that you said something to them. And it's cool that you have the tools I mean, really seriously. This You are like a shining example, example of my assertion that if you get good information and get good, good tools early on, that there is no necessity for you to go through the horrible parts that you hear people going through
D'Arcy 1:00:32
when the right absolutely excellent.
Scott Benner 1:00:35
And you were open to hearing it right away. And so it got to you now, it's interesting, because I'm joking around taking credit, which, you know, I am kidding, you're doing all the work, you know, like you seriously, like you heard something, and you're putting it into practice. I'm not, I'm not there, making sure you do it, it's you. But you seem like you're the type of person who would want to be healthy. Then you've got this friend that comes in that kind of has your back early on, which is helpful, then your mom goes out and helps you. And you have a trust in your mom. So you listen to her when she helps you.
D'Arcy 1:01:09
Yes, all the time.
Scott Benner 1:01:12
I know that's not true. You're just saying this, but that's fine. Let her think that she listens to you all the time mom, she's really a probably the best daughter ever. And, but But seriously, like you've had all these little like, like, like helping hand moments along the way, even in this kind of short period of time that have all directed you to a good place. But you know, it's it's incredibly it's incredibly encouraging to hear you talk about it at the same time. You have to understand other people listening have to understand that there are plenty of people who didn't get that, like they didn't have a friend show up at the hospital and be like, it's okay. And right. They might have had a mom who was like, you should sprinkle cinnamon on that. I saw it on my website about my essential oils, like you don't even know Yeah, the wrong way for them. By the way, anybody who listens that uses essential oils, please don't be mad at me. I just it seems silly to me. But that's fine. And so, but I'm just saying like you, you got good information along good fence posts, like you know, every time you came across something somebody was there to kind of get your dad comes in and says, Hey, listen, we'll do whatever we have to do to make this right for you. And that's right. That's important to know that people have your back. Yeah, yeah, really cool. really is.
Unknown Speaker 1:02:26
Yeah, I'm really grateful for all of the help that everyone around me has given. It really means it means a lot more than they than they know it does.
D'Arcy 1:02:33
No,
Scott Benner 1:02:34
no, I trust me. They'll figure it out along the way, or you'll find a way to tell them if if that if that becomes an issue where they're like, I don't think she really appreciates us enough. Which I'm not thinking it's gonna happen. But did your I never did ask you Is there any diabetes in your family?
Unknown Speaker 1:02:52
Um, funny story. I didn't know that there is any any diabetes in my family until my diagnosis. I have a great uncle who died when my dad was like, seven, who apparently had type one, but I had no clue. And you know, it never really. You know, we never really thought about it, because we never knew like no one in my family really knew him.
Scott Benner 1:03:18
Yeah. So it was just it was an older man when your father was was very young. Right? Yeah. But he had type one. How about that? Mm hmm. So it's it's there. Did he have red hair too?
Unknown Speaker 1:03:30
I don't think he did. I think it was blonde.
Scott Benner 1:03:32
I don't I just it means nothing. I just this is like, yeah, it's like my conspiracy theory episode. Just like it's in the water.
D'Arcy 1:03:39
Well, I don't know where the red hair came from.
Unknown Speaker 1:03:42
Are you the only redhead?
Unknown Speaker 1:03:44
I have a couple cousins who are who have red hair. But I don't know if anyone in my family beyond that has red hair.
Scott Benner 1:03:51
What's the biggest impediment of having red hair is that you can't wear green? Which it What is it? Like what is like the one thing that you're like off? My hair wasn't right. I could
Unknown Speaker 1:03:59
I actually wear green all the time. I didn't know. I'm sorry. I look like a kind of it's kind of a Christmas. I don't know. I like Christmas
Unknown Speaker 1:04:07
theme.
Unknown Speaker 1:04:08
It's a Christmas themed Christmas in July. No, um,
Scott Benner 1:04:14
is there a downside? Or do you not think of it?
Unknown Speaker 1:04:17
I don't wear hot pink.
Scott Benner 1:04:19
Just too flashy.
D'Arcy 1:04:21
Too classy.
Scott Benner 1:04:22
So in a world where your hair was darker, you might have on a hot pink once or twice here. And this is right. And you're being held back by this?
D'Arcy 1:04:30
Right? Absolutely think this deserves its own movement.
Yeah, it
Scott Benner 1:04:34
really does. I think you could start up a nice thing on social media and get all other redheads behind you. And great really become a force in the world.
D'Arcy 1:04:42
So do you have I'll get right on that. Just to go back to school?
Uh, yeah, eventually.
Scott Benner 1:04:50
See, I painted you to be a good kid. And now you're acting like yeah, if I get there.
D'Arcy 1:04:55
It's fine.
Scott Benner 1:04:56
Your your mom shared this story about your your endo appointment on the private sort of Facebook page that I have for the podcasts where listeners get together and talk about, you know, it's all about management stuff and right, they talk to each other about that. Are you in there too?
Unknown Speaker 1:05:16
I'm not?
Scott Benner 1:05:18
Is that not something? And I don't know, I don't mean to say that you should be. I mean to say like, is that not how you need to talk about diabetes? Like or do you not need to talk about at all just the podcast provide you enough like community around or to the people, you know, privately? Or where do you get your community from it?
Unknown Speaker 1:05:35
I, um, I follow a couple of type one accounts on Instagram. And they give pretty good insight of how they deal with their things. It's not really, there's, it's, there's not as much discussion that goes on. But it's easy to look at, this is a certain person, this is what they did, this is what happened, this is what they're going to do in the future to fix it.
Scott Benner 1:06:01
You can kind of infer from what you see there.
Unknown Speaker 1:06:03
Right. And I've actually, I'm hoping to, to start acting as kind of an advocate for that. And not in the sense of social media, but I am at the endocrinologist appointment, he mentioned something called the patient advocate program, which is a newer program that's being started up, where families or individuals who are either recently diagnosed or just having a harder time managing their their diabetes can get in contact with the advocates.
Unknown Speaker 1:06:37
And hopefully,
Unknown Speaker 1:06:40
kind of learn how to manage their diabetes better, or learn different, you know, tricks as to how Pre-Bolus thing works, how to, you know, extend the Bolus how to how to catch a low how to correct a high. So that's something I'm really excited to be a part of, and that's through your your doctor's office, your hospital. Yes, it's true, it's through the hospital.
Scott Benner 1:07:06
That's nice. That's excellent. And so you can have your own private little podcast with people who you're on the phone, which is amazing. By the way, you're going to find that that helps you to because the podcast helps me. Like when I explain things. There are times when I say something, most of the time you're hearing me say something it's like tried and true and stuff I've been doing forever. But every once in a while, like I'll find a different way to say it. And as I'm saying it out loud, I think, Oh, that's good. And you're like, I've never heard that before in my life. And so you get to the idea I'm having right then and there in that moment. And that's very, that's a cool part about helping other people is that you can you'll learn stuff about your own diabetes as well. So I learned stuff for Arden all the time talking to other people. Which is, which is very cool. Cool. Yeah, it's actually where you actually excited to do this. Your mom said you weren't. I thought you were probably she was lying.
Unknown Speaker 1:07:59
Um, she actually, she walked into my room The day after my endocrinologist appointment was which was also two days after I had met, like my huge like, celebrity idol. So I was just really, I was really on a high from all of that. And then she walks in and she goes, Scott Benner just gave you an open invitation to be on the show. And I was like, What? Like, you can be on the Juicebox Podcast, and I was like, wait a minute, I'm gonna be on the Juicebox Podcast. And she was like, yeah. And I was just kind of like, Huh, this is. This is crazy, like,
Scott Benner 1:08:40
best week of my life. Kidding. I'm glad for you. I'm really glad that that's the case. who wish who's the famous person you met? That was your
D'Arcy 1:08:48
His name's Noah Khan. All right, hold on. He's a musician from Stratford, Vermont. Gotcha.
Scott Benner 1:08:54
All right, hold on a second. Noah Khan, like KHNKHN
I see him and what kind of music does he play? Um,
Unknown Speaker 1:09:07
that's a great question. I don't know if I could actually give you an exact genre without other musicians that listen to this podcast, yelling at me for being wrong.
D'Arcy 1:09:18
I'll check it but
and so and the other thing you just said was that you just released an EP. I did release an EP or when I find this out. I did not know this about you. You can find
Unknown Speaker 1:09:27
you can find it anywhere. You can find it on Apple Music, Spotify, YouTube, Pandora,
Scott Benner 1:09:35
amazon music. Are you the singer, the songwriter and musician? Do you have a band? Is it just you?
Unknown Speaker 1:09:41
I right now, it's just me. I'm singer songwriter. My dad took me up to New York this winter. And I recorded the EP and a couple months later I released it
Scott Benner 1:09:59
well, so if I'm on Apple Music which I am I, I asked Darcy What?
D'Arcy 1:10:05
A fake the word fake.
Unknown Speaker 1:10:09
I've hit return.
Unknown Speaker 1:10:12
Why something happened? I've hit return again. Why does my computer not like me?
Scott Benner 1:10:18
Do you think it's for the same reason that people who leave nasty messages about me? Online don't like me? I know why Oh, cuz I'm not searching under music. I was like, somebody told me recently, a friend of mine who's does a lot of good work in the diabetes world, said I had someone come up to me and say, Have you ever heard of Scott from the Juicebox Podcast? And she's like, yeah, Scott's a good friend of mine. And she's like, I love that podcast. I don't like him that much, though. And
Unknown Speaker 1:10:45
so my friend said, she said, I'm glad you like it.
Scott Benner 1:10:51
And, and she says, Let me let me just say to you, I bet that I bet you do. Like Scott, you just don't know it. And I said to my wife later, I'm like, I think that's half of the people who know me. I think half the people like me and half the people think they don't like me. There's my narcissism coming. I think you all like me, even the ones that don't think you do. Why can I not search on Apple Music? Hold on. I'm getting upset. Alright, hold on a second. I see.
Unknown Speaker 1:11:20
I look at you.
D'Arcy 1:11:22
Yeah, it's me. It's amazing. Okay, yeah,
Scott Benner 1:11:25
people have reviewed this and they are much better than they've reviewed my podcast. This girl is so talented. Oh my god. Everyone should buy this album. Alright, so can I can you give me permission to play something on the podcast? Go for it. Which one should I play?
D'Arcy 1:11:45
You should play poison. Okay.
Scott Benner 1:11:48
Unplugged or the original. The original. Okay. So I I am gonna put it at the end of the podcast. So when people are done, they can listen. Not the whole thing. They gotta go by. They want
D'Arcy 1:12:01
the whole thing. They gotta go by it. Yeah, go stream it. Yeah, exactly. We'll give him a little a little taste.
Scott Benner 1:12:06
So thank you. No, that's was such a nice surprise. I had no idea. Right now there's cynical people going Hey, no, this is this is all set up. But it's not about Darcy knows. I don't plan anything. Right. Darcy?
D'Arcy 1:12:21
Right. Yeah.
Scott Benner 1:12:23
All right. Listen, you're terrific. I think, you know, thank you. I'm glad your parents aren't de drinkers. That's a nice thing, too. And I I don't know why I thought that like when when when a kid says to me, I've taken control of my life really early. I think either Wow, really together kid or Wow, really don't trust their parents. Just like there's no way these people are gonna be able to help me. I've got to get on this right away. And I obviously that's neither of those things. You have a lovely family. And, and I think you're off to a really great start with diabetes, which is Thank you. No, no, no, it's really something that is unexpected and exciting. Like I can't wait to hear like I there's part of me that wants to say to you like, in like a year, like do this again, come back on again and tell me how it's going. Like maybe
Unknown Speaker 1:13:12
I would love to or something like that.
Scott Benner 1:13:14
Alright, listen, go back to school. You're a darling. Okay. Thank you so much for doing this. I can't thank Darcy enough for coming on the show or her mom for reaching out and saying, Would my daughter be allowed to come on the podcast. She was terrific. Thanks again to the and I also want to thank the Contour Next One blood glucose meter and touched by type one, you can go to touched by type one.org or Contour Next one.com To find out more about the advertisers, the people who brought you today's episode of the Juicebox Podcast. And now here's a few seconds of Darcy's EP. You can find it of course on Apple podcasts and everywhere that she mentioned
Unknown Speaker 1:14:41
just
Unknown Speaker 1:14:48
surviving
support the sponsors
The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!