#228 Get Your Game Face On

Lilah's mom shares her life as a D-Mom……

Alina is Lilah's mom and she shares her life as the mother of a small child living with type 1 diabetes.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello everyone and welcome to Episode 228 of the Juicebox Podcast. Today's show is sponsored by Dexcom on the BOD and dancing for diabetes, you can learn more about the sponsors at Juicebox podcast.com. We're in the show notes of the podcast player you're listening to right now.

Today I'm going to speak with Alina, she is lightless mother. Halina has had a rough go of it being the mother of a child with Type One Diabetes, things are getting better. But there were a lot of struggles early on and she's here to tell us about them. At the end of the podcast, we're going to talk a little bit about nuts and bolts, management ideas, and everything in between. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise. And always consult a physician before becoming bold with insulin or making any changes to your medical plan.

Hey, if you're enjoying the podcast, please leave a rating and review in iTunes. well reviewed podcasts show up higher in searches, help someone find the Juicebox Podcast leave a review and a five star rating.

Alina 1:28
My name is Alina and my daughter is Laila. She's six years old. And she was diagnosed when she was two and a half years old.

Unknown Speaker 1:42
So you're coming up on four years?

Alina 1:44
Yep. Well, the anniversary Sep. tember 23rd

Scott Benner 1:50
you actually had four years?

Unknown Speaker 1:52
Yeah,

Unknown Speaker 1:52
we're a little more than four year. Gotcha. Okay. Okay. And

Unknown Speaker 1:55
her name again. I'm so sorry.

Unknown Speaker 1:57
Lyla,

Scott Benner 1:58
Lyla. That's a pretty name.

Unknown Speaker 2:00
Thank you.

Unknown Speaker 2:01
I said, She's your first.

Unknown Speaker 2:02
My first.

Scott Benner 2:04
You have a little boy. Oh,

Alina 2:07
I have a little boy who's three. And when she was diagnosed, I was seven months pregnant with my boy.

Scott Benner 2:16
Okay, so you've been busy the last couple of years?

Alina 2:18
Yeah. It's been overwhelming, trying to make it through

Scott Benner 2:24
that feeling that overwhelmed feeling has it been with you the whole time.

Alina 2:29
So I would say like the first year and a half, or I would, I was really depressed. And I would like cry every day. And I remember people telling me after a year, everything will be better. And then when that year mark came and I wasn't better. Then I started getting worried. But like clockwork, it a year and a half I woke up and I realized that my daughter was still happy. And she was all bubbly and excited. And that gave me some peace.

Scott Benner 2:57
Yeah, I think it's I think it's incredibly important not to set kind of false. Like timelines for ourselves about stuff like this. And I did the very same thing. By the way, I had it in my head. At the end of the year, I'll understand this. Like, why I why I picked the year I don't know why didn't I?

Alina 3:14
Everybody told me a year like a year. That was the golden.

Scott Benner 3:18
Yeah, the magical number like why wasn't nine and a half months? You don't mean like, Oh, my year so then at the end of the year, I panicked. I didn't do what you did. You made it out. Six months later, I panic. I was like, okay, two years. That was very, very forgiving of the situation. I was like, well, we just give it another 12 months. It turns turns out none of those things were the answer for you. The answer was just recognizing that a lot of this was how you felt not how she felt.

Alina 3:44
Yeah, I would look at her. She She was so happy, you know, in front of her I had my game face on. And I said it's no big deal. I was always trying to make it. Not a big deal. And she picked up on that which is good. Even Even now I say Do people ask you about your your monitor? She goes, Yeah, but I told them, it's for my diabetes. And it's and that's what it is.

Scott Benner 4:09
Yeah, I think that's what I think Anyway, you can get them too. Two, it's no big deal to thinking of it. It's just part of how things are and not some horrible drain on them or a thing to be embarrassed about. Any way you get to that it's great because that's an incredibly valuable lesson to teach a child or an adult living with type one is that you cannot be you can't spell you know that it's funny. I just got done speaking at a thing this weekend. And I was all done. And I was completely exhausted. And I had spoken I did a morning breakfast where we talked about being bold with insulin with a small group of about 60 people. Then at lunch, I did 500 people in the main hall. And then right after that I ran into a q&a and I must talk to another 200 people along with some other folks on a on a on a q&a panel. And even as I was leaving I felt guilty completely exhausted, but I had a T shirt leftover. So I took it down to the kids room to take, just give it to somebody. And I was I was walking out there was a teen room, and I went in there. And I chatted with him just for a couple of minutes. And one of the kids said that they don't, they don't Pre-Bolus or sometimes don't Bolus offer their meals at school, because they're embarrassed for people to see them. You know, they're giving themselves insulin. And this was just a person with a pump, not not injections. Yeah. And I told the whole room, I said, Listen, nothing, nothing can be as important as your health. You know, you can't let someone's opinion or, you know, a sideways glance from somebody, or even being embarrassed get in the way of your health. Those people will be long gone later in your life, when you're having trouble because you just didn't want to Bolus in front of them.

Alina 5:52
I know. And from the get go, I would check her finger in public, because I didn't want a whole life of hiding. And I didn't want her to have a complex. And so I think that's working out well. And then I took her to a diabetes camp recently, and everybody's doing it out in public. So she feels a little more. She's not as doesn't feel as alone.

Scott Benner 6:19
I believe in the free love version of diabetes. So there's a 16 references in it. Look out why

Alina 6:26
I was born way after

Scott Benner 6:28
I told those kids in the room like you any of you listen to the podcast and a couple of them raise your hand and I said is it seeming like a bad idea? Now that you see it's an old man doing it? They looked at me like yeah, I kind of know i think that's that's spectacular. I don't I once wrote a whole article about hiding there is somebody on an airplane who got yelled at for like checking their blood sugar or giving themselves insulin in public. And it made me so angry that that they they were told to like go, you know, shuttle off to the bathroom when a plane. Yeah, give themselves their insulin there. There was no harm in what they were doing.

Alina 7:06
I mean, going back to like, the early years with her is she she was about to choosing a preschool. And they came up with the lame excuse of Oh, parents don't want to see. Don't want to hear about a girl. Blessing check. So they kicked her out of the preschool. Really? Yeah, it was a private preschool. So they're not they didn't receive public government funds. So they were free to do whatever they wanted to do.

Scott Benner 7:38
Money against your daughter for checking your blood sugar, because they thought other people wouldn't want to hear that that was happening in the room.

Alina 7:45
Right? And it was such a battle finding a preschool for her, I would say maybe like six places rejected her. Nobody really wanted to deal with it. Because, you know, a lot of work.

Scott Benner 8:00
Yeah. And then by the way i get that I get if it's somebody who's like, Look, we're not qualified for this, or I don't feel like I could take on that responsibility that I at least understand a little bit. But, you know, to stigma because imagine you're I mean, she's your oldest, and she's two and a half. And now she's being stigmatized and told like no, like, get away. Dirty do. And that's now the problem you're dealing with early and like building a family. I imagine how long were you married when you had her?

Alina 8:31
Oh, had her? I was married two years prior.

Scott Benner 8:35
So you're building a family. And there's there's your beautiful little girl. And then and this is happening? Did it Do you think that was part of the depression?

Alina 8:45
For sure. Like I I felt like everyone, just like you say I felt like all the adults were afraid. And I literally for one preschool did all the training, like did outlines did all the charts. And the day before it was supposed to start. They said no, you know, we're not equipped to handle her. So they

Scott Benner 9:04
were a yes. And then they were no,

Unknown Speaker 9:06
yeah, I

Scott Benner 9:08
think the preparation scared them.

Alina 9:11
It did scare them. But I didn't know any other way to simplify it. You know, I kept trying to simplify it. But then in the end, there were some details that are important.

Scott Benner 9:20
We look back now. Do you see how that those details? Probably they were like, Okay, this is a lot.

Alina 9:26
I totally get it. But I didn't know what I was supposed to do.

Scott Benner 9:29
No, I don't. I don't blame you. I'm just saying it's interesting what hindsight does, because I can look back on some of the conversations I had early on. And I think oh, there was a crazy person standing there explaining those people. Yeah. Right. Because isn't it What happened is you thought of all the myriad of possibilities. And you felt like you had to explain what each and every one of them was.

Alina 9:53
I did it was even confusing to myself. So, you know, I didn't even have it figured out but then we Found a preschool an hour away. And it turned out to be the best place ever. The teacher would had no fear. And she never complained about it. And like that was the first time that I could just relax and know that she was responsible. We would text all the time throughout the day. And that was like a very pivotal part to helping me get over, you know, my depression,

Scott Benner 10:29
finding the right person to support you. Right, and starting to build your own little community there.

Alina 10:36
I did, it was an hour commute.

Scott Benner 10:38
So while I was just gonna say, I mean, you must have really loved it. Because an hour I mean, how did I get there? Did you FedEx her in the morning? It just

Alina 10:50
gets worse. Once I dropped her off. It took me another 45 minutes to get to work.

Scott Benner 10:54
you're commuting almost four hours a day just because of one of the preschool?

Unknown Speaker 10:59
Yeah.

Scott Benner 11:00
Oh my gosh, did you ever consider just locking her in a closet and going to work? I mean, I don't think that's legal, but it does.

Unknown Speaker 11:06
I'd worry about her lows. I couldn't do that.

Scott Benner 11:10
I ended my kid, but she's got diabetes, and you see her blood sugar? No, I mean, but seriously, that's an incredible commitment from you to get her to something that was valuable for her and for you. I mean, it was no joke because you live in California to write

Alina 11:27
on Los Angeles, the heart of Los Angeles, an hour

Scott Benner 11:29
and 45 commute you had to drive home with what you driving three miles, maybe four? Oh, I

Alina 11:34
don't know. too long, too long traffic out there from the valley. I would drive from the valley to West Hollywood to downtown LA.

Scott Benner 11:45
Oh, bless you. I mean, that really is your good mom. Because because that's a lot of effort. You know what I mean? Like just to find a good situation for so what changed for you once she got there? And she was being supported? I mean, I guess the first question is, what was the person you were leaving her with? What what kind of, I guess attributes that they have that made it a comfortable situation?

Alina 12:07
She was just super confident. She said, we're going to keep her here. We're never going to ask her to leave. She was just very smart. And had no experience with type one whatsoever. But just didn't complain didn't make me feel bad. Like I remember in other preschools that I would be in a panic if I knew she was going low. You know, I didn't know I wanted to protect them from anything. And whispered

Scott Benner 12:37
I'm sorry. So you were right now about Laila and about the people at the preschool in the obvious ones. So you were you were shouldering the burden for all those people at that point,

Alina 12:46
all of it. And I like glitter. That was like, such a traumatic time for me being rejected all the time. And then to be accepted finally was such a relief. And I mean, I felt like a normal person again, where I wasn't in fear that she was going to get kicked out.

Scott Benner 13:03
Yeah. And that was this just lip service, or were they actually good at like, where they just be like, Don't worry, everything's gonna be fine. And everything. Well,

Alina 13:10
she had no idea what she was doing. But I trained her and I texted her throughout the day.

Scott Benner 13:14
Like she was open to doing that with you.

Alina 13:17
He was open. And she's like, she just wasn't scared. Like you said, like fears. Anytime I look for, like a babysitter or anything, I'm, I need to know that they're not scared, because I can't work with that.

Scott Benner 13:32
Yeah, well, I mean, it's too It's too limiting. It just really, I was just listening to something that's going to go up today, which of course, by the time someone hears this will be six months ago, but it'll go up today. And I was saying, like, even just slowing down to pause a little bit, you know, being scared to Pre-Bolus as an example, like, if you just pause a little bit, it's too late, you've missed your window. That fear with diabetes is, you know, you have to you have to obviously understand what you're doing. But then from there, there's no no moment to pause, just, you know, do what you know, is right and go and, and that fear freezes you it messes everything up.

Alina 14:10
Um, when I was going on at the time, my son, he was born in December, the end of December of 2014. And then he ended up in the NIC queue for just a myriad of reasons and nothing that serious, but he was there for 10 days. And this is all while we're trying to figure out how to care for Lyla.

Scott Benner 14:32
So it was a crazy time to say he when he's born she's only diagnosed a couple of months, right?

Alina 14:39
Yes, and I and I just found out from a friend that there's something called a CGM, and I pushed my endo office to get the dex calm and a pump. And they were telling me the whole spiel about wait three months, you know, theory and used to injections. And I said, That's crazy. I'm about to give birth. I need help. You know, I need technological assistance. And so I finally got those devices. But I got the the CGM like right before I gave birth and I got the pump, maybe a month afterwards.

Unknown Speaker 15:14
Okay. So it did end up taking three months, which is, but it could have been longer if I had just waited, like they said, right, they would have made you wait three months and then it would have taken three months. Give me one second here I'm gonna text Arden about a bolus she needs.

Scott Benner 15:31
Um, the pod created their pod for anyone with insulin dependent diabetes. If you start today with the Omni pod, you can say goodbye to needles and pens. If you have diabetes, and your body requires insulin, you need to know about Omni pod, it can make your diabetes a smaller and more manageable part of your life. I'm talking about people with type one or insulin requiring type two diabetes. Those people and the caregivers of children and adults with diabetes are choosing pod therapy as a simple, smart and discreet way to control their insulin and manage their diabetes. With pod therapy, you have a proven reliable insulin management system that can provide up to 72 hours of continuous insulin delivery. It all starts with their tubeless design in a wearable pod that is waterproof, discreet, controlled by a personal diabetes manager. And the PDM can help you accomplish everyday tasks like carb counting, bolusing, Temp Basal, and much more. One of the things I love the most about on the pod is that they don't make you take some guys word for it. Yeah, my daughter has been using one for 11 years and we love it. But you don't have to trust my word. I mean, you can say Yeah, that makes sense that guy teams to know. But I'd like to know, for myself. Well, you can go to Miami pod.com forward slash juice box. You fill in your name and your address. And on the pod, we'll send you a pack in the mail. That's not a kiss. That's a pod experience kit. That's right, you're going to receive a free, no obligation demo of the Omni pod that you can try on where and make the decision for yourself. Miami pod comm forward slash juice box with the links in your show notes for Juicebox podcast.com. Arden is full on mature at this point. And the last number of days. Her blood sugar has been insane. Oh my gosh. So something that would take say 13 units was suddenly making like 26 units.

Unknown Speaker 17:43
Wow,

Scott Benner 17:43
it was doubling her bazel from 1.4 to three an hour. And that wasn't enough. We were we had double bazel and boluses. And everything was just everything was a mess. And last night like it she's supposed to get her period yesterday. And this morning she wakes up and her button her blood sugar's like four o'clock in the morning, it's getting low. And so I'm trying to bring it up and all of a sudden now I can't bring it up. So I'm like, okay, so I finally get it up and I send her off to school and it starts going up again. And now I'm like, okay, is this like a trend? Like it's gonna go up like crazy up like it has been? Or is it going to now mimic the low the lower thing and like back to normal and, and so I got really aggressive in the morning, but then that made her low. And so we fought with the low, you know, got that insulin through her and then headed into into the lunch and I was like, oh god, what do I do? So I you know, like Pre-Bolus not as much as I should have, but not by much. I didn't it didn't. I didn't kind of you know, I didn't wimp out completely. But our blood sugar's like 160 now an hour half after lunch. And so I'm gonna try to get her to push it down here.

Alina 18:52
We have a different situation going on. I think something happened with the breakfast bolus, and it didn't go through. And now she's that Hi. So my husband is going to rush over and change your pie and give her another correction.

Scott Benner 19:09
She's and she's now in kindergarten,

Alina 19:12
do you think kindergarten. And we have this whole system where for certain hours of the day, the nurse and I monitor her so I'll text the nurse if she needs to treat a low and then I have an aide come in, that I pay for for like four hours of the day who can pose her for insulin and monitor her because Laila is so dependent on adults.

Scott Benner 19:43
So this person just rolls up for a couple of hours and handles while his blood sugar's for you.

Unknown Speaker 19:49
Yes, God bless, sir

Scott Benner 19:50
and you don't have to be involved at all. She's just, she's

Alina 19:54
Oh my god. She's so so I had one aide last year, Brianna and I have another eight this year, Kaylee, and they're so great at first, of course, I was texting, like to make sure they treated lows and everything. But there's so on top of it, that it's the first time that I can work. I actually work full time. And so I can actually focus on my work instead of my Dexcom.

Unknown Speaker 20:20
Good for you. That's amazing.

Alina 20:23
And the rest of the time I text the nurse. So I'm always monitoring.

Scott Benner 20:29
And I just clicked around and looked here so I could see the dates. But what is it now that right now it's November 2018, which will throw people off when they're listening in the middle of 2019. But in January of 2019, I'm going to interview Brianna. Yeah. Oh, yeah. So you're on and then she's on. And we won't give Breanna story away. Because it'll be it'll be more fun to hear it there. But, but I think that is really cool. So let's kind of backtrack a little bit. So she's she's diagnosed and it's only a few years ago. You obviously didn't leave the hospital with the CGM, because you had to fight for one. But how are you giving insulin? What did they give you? On day?

Alina 21:05
Oh, syringes. They we only stayed a night. And in the morning, there was like a two hour lesson that I had no idea what was happening. And no one was in my family was paying attention. And of so overwhelmed. And they said, just go home and give these injections, and good luck. And my parents were actually in another state on vacation. And so I called them frantically to fly back and they're like, you'll be fine, you know, didn't really understand,

Unknown Speaker 21:36
like, Don't ruin her vacation.

Alina 21:39
I'm like, No, every hour, I'd call fly back. I need you. And then they finally flew back. And they're like, Oh, this is what you're doing. This is intense. We didn't understand all that.

Scott Benner 21:51
Hey, you had you were probably pretty far into placenta brain by that part of your pregnancy, right? Like, I

Alina 21:56
know. My body was shaking from the diagnosis. I was shaking, I was worried I'd go in like early labor. And I called my ob and he's like, you'll be fine for another two days. Because the fluid is circulating.

Scott Benner 22:12
Like nothing else, comforting.

Alina 22:14
None of like, Wow. Okay, I have two days to calm down

Scott Benner 22:18
with your parents at least on like a really great vacation where we could all feel like, Alright, I wouldn't have left either.

Alina 22:23
Um, I don't recall where but they were really upset about leaving, and they went a year later to the same place.

Scott Benner 22:30
That's very nice. Yeah, listen, I don't it's a great example. Right? Like, they're, you're telling them what's going on? And they're like, oh, diabetes, that doesn't sound that serious.

Unknown Speaker 22:41
Okay, medical How?

Scott Benner 22:43
It's all gonna be fine. Please, we saved for this trip.

Unknown Speaker 22:47
I know. They said that. I feel like you

Scott Benner 22:49
owe them a trip after like later when like,

Alina 22:52
well, they kept bringing it up or down location again. And so they did and now they're fine. But but

Scott Benner 23:02
wow, that made me laugh. Okay. So you add you add in you add syringes. And that was obviously, especially in the early. I mean, I remember the first couple days, it's ridiculous. You just, you really feel like someone handed you a gun. And you never shot one before. And you

Alina 23:18
just never given an injection before like, Oh my god, terrifying. And I remember my husband gave the first injection and he started crying. He never cried. You know, like that. He just did that to his daughter. And then my daughter was in the hospital screaming like, what are you doing to me? And like that scream is still in my head for saying that. What are you doing to me? You know, she's little, she's tiny. Someone was

Scott Benner 23:45
just telling me the other day how they used to have to pin their kid down to give them injections. And I remember, I had to do that with Arden sometimes too. Well, okay, so do you have Are you still injecting now?

Alina 23:59
Oh, no, it's the Omni pod. Because once the Animus ping, ping went out of business, you push to Omni pod with the Dexcom g six and we use Kriya insulin.

Scott Benner 24:15
How is that? How

Alina 24:16
did you I love it. It made a huge impact on Laila. Like the corrections were so much faster. And that kind of was the beginning when things started getting better for her.

Scott Benner 24:30
Yeah. Well, what what insulin did you start with? What's bad about that one first?

Unknown Speaker 24:34
novella, same company, they

Scott Benner 24:36
don't care. And so yeah, so and she moved to the is it Fiats per Fiesta? I don't, I

Unknown Speaker 24:42
don't know, should I should

Scott Benner 24:43
spell it in a way where it's not ambiguous. But anyway, that's faster.

Unknown Speaker 24:48
I think that's why the app part right,

Scott Benner 24:50
that's where the name comes from faster insulin as part so that's really sexy. But but never. Nevertheless, the naming By the way, naming for drugs to see incredibly complicated. The FDA has a say in it you can't make you can't sound too much like another drug. It's there's like,

Unknown Speaker 25:06
wow, Bobby's about it. But,

Scott Benner 25:07
but nevertheless, so you've how long you've been using that one, the new one

Alina 25:11
came out as soon as it came out. So it's been a couple months.

Scott Benner 25:17
Okay, as soon as they said it was okay for pumps, or no, it's not okay.

Alina 25:21
As soon as they came out with it on the market here, and they said, it's, it's approved for adults. So my doc doctor just did you know what he needed to do?

Scott Benner 25:33
Cool. So yeah, because it's not. I don't think it's FDA approved for pumps yet, but people are using it in pumps.

Alina 25:40
Yeah, I don't know why more people don't use it. It's really amazing. And the Pre-Bolus is there so much shorter.

Scott Benner 25:48
How about was later you see any lows later.

Alina 25:51
Um, we have lows before. So we don't see any lows later. It just everything is faster, like the corrections, everything just goes at a faster rate, which is great, because we would sit there for like three hours and wait for her numbers to come down. You know, everything that you face and deal

Scott Benner 26:13
with? Ellison, it happens you got to just figure out how to stop. But when it first happens to you, there's no real way to you can't just guess it's it's, you need to wait until somebody kind of sometimes explains it in a way that you're like, Oh, that makes sense. I'll try that. Okay, so you're using an insulin pump using Omnipod? Using Dexcom? Are things like you said things have been better? Where things not good in the beginning, like in the very beginning, were like blood sugar's crazy. Were you guys struggling with that? constantly?

Alina 26:42
Oh, yeah. I mean, we, we, she was diagnosed really early, she was a seven point 91 C, but such huge spikes and drops. And we were at Children's Hospital. And they have a really great program there where I could speak to a nurse every day if I wanted to. So I literally would email the nurse every day with her numbers and ask her what settings I needed to change. And I would change the settings constantly. And, you know, for like a year and the poor nurse. She went on vacation for two weeks. And while she was gone, I realized I could just do it myself. And she came back and I like barely ever contact her anymore. But I was really glad she went on vacation that one time

Scott Benner 27:35
because I thought like your parents vacation. You're gonna be like I made her come home. And no, yeah, I mean, honestly, that really is the truth. Like it's, I heard a million people say it this weekend. But you have to be able to make these adjustments on your own plus, have you learned that making them as frequently as you were probably wasn't. valuables you thought?

Alina 27:58
Oh, totally. What happened is, let's pop a year ago, she had an 8.181 C, and that just traumatized me because she had always been in the low 70s. And I realized my set my perfecting the settings. settings had done nothing for her. And maybe I should just improvise a little bit more. And that's when I started listening to your podcast. And I now I only change settings maybe every two weeks. But I'm saying tip

Scott Benner 28:34
when you're saying settings, you mean insulin to carb ratios or basal rates are what

Alina 28:39
override insulin to carb ratios and ISS.

Scott Benner 28:42
Okay, I only change that stuff as artists growing when she gets bigger and requires more insulin. I move her basals up in her, you know? Yeah, to be honest, I don't it was her insulin to carb ratio. I don't even really, I don't know what that is. But I it's not that I don't let me start over. I know what an insulin to carb ratio is. I don't use it. I don't pay attention. Hey,

Alina 29:03
you know, it's still like in the back of my head that I want to prevent low so that the school doesn't kick her out. I still have that in the background that said I'm sorry. It

Unknown Speaker 29:13
is sad. Yeah. No,

Scott Benner 29:15
I feel badly when you said that. Just the idea that that stuck with you. I understand how it could have but that it's stuck with you for so long now that you're not in that situation anymore is a good indication, by the way why you don't treat people like that. Because it's it's difficult to shake stuff sometimes. And excuse me, people put these thoughts in your head and it's difficult to get away from but I hope you can let go of that one because, you know, I mean, you don't want her to get low because you don't want her to get low but not because somebody was mad at you that that I don't want you. I don't want you living like that. Yeah, okay. All right. So okay, so I would say oh, I usually This will be fun. I usually unplug the phone during the podcast, but because it's Election Day. Oh hoping that I get Like a robot cloth from like a, like a famous person, but instead it's gonna end up being like my mom or something like that. I'm gonna guess it's my mom called her lately. Well, she and I were texting on Sunday. And I said, she cheated. My mom has the ability. See, she won't give up

Alina 30:22
after a really loud rang. Yeah,

Scott Benner 30:24
well, it's an open floor plan. So it's, it's echoing around, you would think she'd stop? This is fascinating. I'll edit most of this out. But you and I will sit here then I'll tell you the story of my mom. So my mom can and I'm sure everyone says this, but my mom calls at the absolute worst times. Always. It is I used to believe that she had a camera in my house. And she could see when was the most inopportune time and then she would pick up the phone. And and and i don't know that that's true. I don't believe she's technologically advanced enough to accomplish that. But I do believe that, that on some level, she can feel me. Yeah. No, I'm adopted. Not even. she bumped around. She basically just picked me up like in a like a food market. Oh, I don't know where they where she came from. Yeah. But anyway, my point is, is she calls at the worst times. So the reason I texted with this weekend, I'm on stage, getting ready to start and I get a text while on Hey, what's going on? Yeah, Mom, I'm in a different state about to speak to a whole bunch of people. And she's like, Oh, okay. And then, but it's not just though. Okay. Then she still asks the thing she,

Alina 31:43
yeah, Yes, I have. I know what that's all about. What's my mother in law? I said, I'm with a client right now. Is it urgent to those? Okay. Just one minute, I need to tell you about the pants that I bought Laila.

Scott Benner 31:58
That's my mom. My mom does that my mom and your mother and one might be the same person that mom I can't right now. The house is on fire and Arden's dying on the floor. I have a lot to do. Yeah, that's fine. I didn't mean to bother you. Just real quickly, when I look at my computer, and this thing pops up like no, no, not now. Anyway, and why did my answering machine not pick up? I have a lot of questions, but we'll get past those right now. Anyway, my point was, I didn't unplug the phone for our podcast, because I'm hoping some famous robo call calls and I'll get it on my machine. It'll be like, Hello, I'm Barack Obama, or something like that. It's gonna Oh, that's what I was hoping for. Anyway, instead, we got my mom's ring 19 times. I'm very sorry. Are you ready to see your glucose levels in a whole new way? Well, the dexcom g six eliminates finger sticks for calibration and diabetes treatment decisions. That's right, the dexcom g six continuous glucose monitor helps you see where your blood sugar is going, and how fast it's getting there with no painful finger sticks. Now if this sounds like the work of wizards and witches to you, if you've never heard of the dexcom CGM. Let me tell you a bit about it. CGM stands for continuous glucose monitor. And I'll tell you what this beautiful little device is at the core of how we help my daughter live. unencumbered, and happily every day with type one. I'm recording this around 930 on a school night. And Arden's blood sugar is 71 and stable. That's right, my daughter is going to go to bed tonight with a blood sugar I'm guessing at about 78. And it's gonna sit there as steady and as peaceful as can be. And if it doesn't, if it tries to go up or down, I'm going to get alerted. And then I'll make a decision and take action. But if it stays nice and stable there 70 870-980-8182 wherever arrest restful night's sleep, it will be. Come on, that might sound good to you. By the way, I'm telling you what my daughter's blood sugar's right now, but she's not with me. How am I doing that? Because I have dexcom share. That's right. My daughter is using a follow app on her phone. And I can see it on mine that's available for Android and iPhone. Come on dexcom.com forward slash juice box, go find out about it now. It's gonna change your life. You're in a really interesting position because you hope you're holding on to some thoughts from years ago. You're obviously I mean, I don't want to put words in your mouth. But it seems to me like you're still nervous because the aid so that Laila doesn't have to wait with five or six other kids. I mean, that's, I think a lot of people would have heard that been like the kid could just stand in a line. But you really, you said she can't stand the line. So just she can't stand on the line mean, something bad's gonna happen. It's just

Unknown Speaker 34:56
like you don't want

Alina 34:58
her Pre-Bolus at a certain point. Hi. And sometimes those kids could take a while, like half an hour, and then her lunch is over. Like I can't, they only have like a half an hour lunch and a half an hour recess,

Scott Benner 35:12
you definitely don't want that. Like either her Pre-Bolus will be too late. Right? Or she'll waste away all the time. Now she's in kindergarten. So she's what she five or six,

Unknown Speaker 35:22
she's in first grade. Now.

Scott Benner 35:23
She's six,

Alina 35:25
six, and let me just tell you, she's so hyper and, like, not focused that someone else the aide sits with her at lunch to make sure she eats. Or else she would just talk and talk and talk with their friends.

Scott Benner 35:39
That sounds right, though. You know, like, I think I was probably like that when I was six. I might be like that. Now, to be perfectly honest. Because that was gonna be that's what I was gonna ask you. I mean, I'm assuming this isn't how you want to do this forever. So, I mean, podcast a lot. Are you considering texting when she's able to?

Alina 35:57
Yeah, well, right now I'm texting the Nurse Aide. But let's just not you know, she's not ready for that yet. Ready for that? And I'm just like, holding out hope for the Omnipod horizon to make my whole life better.

Scott Benner 36:10
I think it definitely well, by the way. I but but so but if say horizon wasn't on the horizon, sorry. It say it wasn't coming. Would you think at a moment when you thought she could handle it? Would you take the nurse out of the chain and just be between you and her?

Unknown Speaker 36:26
What's the goal? Yeah,

Scott Benner 36:27
no, I think so too. That's excellent. But I mean, it's six years old. There's a lot of time still before that's going to be Oh, yeah. Before that's going to be something you can do. I mean, do you have a time in mind where you think she's gonna be okay. Are you just gonna wait and see how it goes? Well, I

Alina 36:45
have no idea when she'll be mature enough to handle it. I keep asking because some people say 10 Some people say 12. Some people say 18.

Scott Benner 36:54
Oh, keep in mind, some people told you would take a year for you to completely understand. Yeah, I wouldn't. Yeah, I think it's gonna be when you see, when you see it in her, you know, when you're like, Okay, she can she'll handle that she'll answer my tax. She'll do what we talked about. You won't get distracted while we're talking. And, and keep in mind Also, please, it still happens. You know, I mean, Arden's 14, she's a freshman in high school. And how long ago now that I tell you, I was gonna ask her to Bolus. She hasn't answered me yet. It's been like 10 minutes. It's not I mean, it's this is just a little bolus to bump a blood sugar. So I'm not worried about if it was more dire in some way. Then I have other ways of you know, getting

Alina 37:38
Yeah. No, but Laila still so little, like, learning how to write I don't think engines read, right. And so I wouldn't trust her to read words on the pump. And don't don't get me wrong.

Scott Benner 37:53
I wouldn't either. It takes Okay, I finally got a hold on there. It takes Tobin it's the right thing to do. You know, it can't be, he can't rush something like that. You can't say, Oh, she understands some of the words like I was talking to someone the other day whose child doesn't really, I think, speak English that well. And so and the mother, like, and she's like, I gotta wait till she gets all this better. Because she's like, she's nine, but she can't read. Oh, I know who it was. I think it was like, I forgot. It was somebody I am hoping to get on the podcast. But she I think she adopted her child. And the kids still learn how to read English. And she's like, she can't read it yet. They could use me for a minute. I was like, you have a nine year old, they can't read. I think that seems odd. But then I realized what was happening. And I was like, oh, that totally makes sense. But that was her barrier as well, which has, I can't 100% trust that even what I'm saying is being picked up. But I'm going to tell you that once it is texting is absolutely one of the best tools I've ever found in my entire life. It changes everything, it makes things more immediate.

Alina 38:58
And I I wonder what the new technology if we'd be able to bolus her from our cell phone in the room when we're not anywhere near her remotely.

Scott Benner 39:10
So that's, if that ever happens. That's far off. I would think the first time. Look, I have no idea. But that's the FDA is has been in the past rigidly against that. And my understanding through conversations I've had recently is that they're, they're softening on the idea. So I think once they've now you know, like, you know, very soon the the dash is coming out from from Omni pod. it'll, it'll be out when this goes up. But all that is is a lockdown android phone that speaks wirelessly, you know, to the pod. So I mean, I think once the FDA saw that they're like, well, what's the difference between that one and this one? Well,

Alina 39:56
I have to be within 20 feet of her.

Scott Benner 39:59
It'll still need to be Yeah, probably in Bluetooth distance. Yeah. And so, like, so yeah. When when are they gonna let you bolus from your bedroom from another device that's not directly connected to the pod? And the answer is, I mean, who knows, you know, I mean, like, when you stop and think about it, if you wanted to be able to send, my car has a remote start, right. So I go into an app, and I remote start my car, that means I send a signal, it goes up in the cloud, and there's something in the car that receives that signal, but you're on the pod pump, your the pod itself, never going to have anything in it that can receive a signal from like, like from the, you know, from from us satellite, or from the internet. So, and you couldn't build that kind of technology into the pod. Like, imagine how expensive that would be to build that technology into the pot borrowed away every three days. So there's gonna be something, you know, you'd probably have to still have your dash with you. Like, say, your kid had his dash with him, maybe the dash could be connected to the internet and you could remote dash. But still, that's up to the FDA to loosen up on I do know, the pump companies want that they're some of them are trying to, you know, move the FDA in that direction. But I think it's gonna take some time.

Alina 41:16
But the most common fight between my husband and myself is who's going to go up in Bolus her. And I don't hear that a lot on your podcast. But like, that's like, all we fight about is like your turn, your turn. And we have to do for two storey house, and we watch TV downstairs are so tired. And

Scott Benner 41:38
yeah, that that happens here. I mean, used to happen a lot more frequently than it does now. But I Oh my God, I know you're watching television like pause, I gotta go upstairs. And then it's, it's 11 o'clock, right? You're like, Oh, my God, this was my life. Like, this is the part of my day I was excited about Yeah, you're like a lump watching this television show. And even though I might get through,

Alina 42:00
but he he's the one that gets up at night. Oh, no. Yeah. And he goes to he sleeps in and then goes to work later, he has his own firm. So he's able to do that. And then I have to wake up early every morning to drive Laila. So I'm out at night. And so he holds that over my head and says, I do deny you better golf now.

Scott Benner 42:29
Well, you're you could probably persuade him, you probably don't have enough energy to persuade him. So I guess

Unknown Speaker 42:36
I try to bribe him as

Scott Benner 42:40
well, that is really cool, too, that you guys have shifted things around. It doesn't surprise me. I mean, when you told me in the beginning that how far you're driving, just to get her to to a decent place for care. I would think you would go that extra mile for the other stuff. And it's cool. So your husband pops up overnight. He gets the broken sleep. He sleeps a little extra in the morning and has that freedom to go into his own business? A little later in the day.

Alina 43:03
Yeah, cuz he's able to fall back asleep. And I can't do that. Like I tried in the beginning. And I would just be awake the whole night. just worried to say is that anxiety that keeps Yeah, definitely anxiety.

Scott Benner 43:16
Yeah, I did last night. The girls like passed out. And an Arden's like I said Arden's blood sugar was incredibly high for a couple of days. And then, and so they were watching television in my room, they fell asleep together. And when I went upstairs, I thought, I'm just gonna leave her here, because I'm probably going to be fighting with this blood sugar all night. And then it was, you know, it was kind of fine. And then all the sudden low, and I was like, so I was just fighting in a different direction. So I did, I did what I did around 4am to stop this 65 diagonal down that I had going on. And, you know, as soon as I saw the diagonal, down, arrow go away, and it came back to 70. I went right back to sleep. Or I was just like, goodbye, but I I have had nights, like the ones you described, where I look, and I think I don't trust what's about to happen. And then I'm, you know, before I know, and I've watched three episodes of something on Netflix that I've seen six times already, you know, and because you are worried like, this doesn't seem like it's gonna hold. I've definitely had that experience more times than I'd care to remember.

Alina 44:21
When I have to be at work, you know, in the morning, I just need sleep.

Scott Benner 44:24
Yeah, you have to listen, you can't one of the things I like, you know, in the middle of my talk, yes. The other day, really just talking about insulin, I made sure to stop and tell talk to the parents in the room for a second and tell them the exhaustion piece is huge. Like you get a you know, I found myself saying when you get exhausted, it happens in an incremental way where you don't kind of feel it coming and then once you're there, you're trapped there you're like on the you know, like you know that Stranger Things where they're all behind the walls like you're behind that wall. Now you don't know how you got back there and you definitely don't know how to get out and you almost don't know what's happening. to you. And so you're lost in this fog. It's really important for people to cover for each other if they can and to get as well as possible.

Alina 45:08
And during the day, I'm the one monitoring her. So that's my whole workday is like monitoring and working, monitoring and working. How much?

Scott Benner 45:17
How much trouble Do you have like passing off that night? Like, do you have trouble looking at your husband and being like, okay, it's your turn now and not thinking about it? Are you tired enough that you're able to do that?

Alina 45:28
Come again,

Scott Benner 45:29
are you like, like, do you feel anxiety when you pass the baton? so to speak?

Alina 45:34
Yeah, I used to Oh, my gosh, like when I wasn't with her, I was freaking out. And then one day, my mom was like, I'm watching her, go, relax. And now I can just switch it off, and I'm happy to pass the baton. I'm like, I'm going to bed. Good luck

Scott Benner 45:51
with our people I know who are listening. Who I have heard that? Because I said to someone this weekend, you know, they said, Oh, are you not watching Arden's blood sugar while you're here? I'm like, I'm in Ohio. Like, no, I'm not watching it. You're like, my wife's watching. And when I'm watching my wife's at work, you know? Yeah, she's not watching it. She's working, and I'm taking care of it. So and is it necessary for you to look at it as often as you like, How frequently do you think you're aware of her blood sugar?

Alina 46:19
I mean, I would I look every 40 minutes or so? Because sometimes the nurses with other students and she doesn't, she doesn't see it. So we're like each other's backup.

Scott Benner 46:32
So where are the settings on her CGM? like where do you Where are you alarmed for low and where you alarm for high?

Alina 46:39
For me, I put it at 85. And I think the nurse wants a slightly higher so it's that like 95. But I told her not to treat a low with fast acting glucose unless she's under 80. So she knows that but it just puts her on alert. And then the highs I don't even keep a high alert because I'm always watching her numbers. I

Scott Benner 47:04
mean, what if you put a high alert on then you wouldn't have to watch. Because then when you weren't being alarmed, you would know you were somewhere between 85 and that number?

Alina 47:12
Well, this what happens is, she always goes low, mid morning, she's never high. And then by lunchtime, she needs the bolus. And if she needs a correction, that's when the aide does it. And then at two o'clock, the aid is still there and can give a second correction or in between Temp Basal. So someone's always watching. Okay,

Scott Benner 47:33
so I've two thoughts. And of course, you don't need to take my my thoughts as anything other than my thoughts. But I would practice on the weekends, I would take a high threshold and move it down to I don't know 130 and not look at that thing unless it beeps. Help yourself a little bit. Because if between 130 and 85, I'm assuming you'd be very happy with that. Walk right and so. So instead of being anxious all the time, wondering when she's going to get higher, just know that it'll tell you and then let go, you know, you can just let go in that space. And you know, the lows, the way you're handling the lows is completely reasonable. I mean, she's, you know, six years old, she's in first grade, I'd start thinking about a low around 80 if I was you as well, we don't do it till 70 but Arden's also older and you know, we, we've been at it longer and stuff like that, too, but I think you're doing I think you're low thresholds. Terrific. I think the way you're handling that sounds amazing. But I think for your own sense of sense of what sanity You know, I think if you did that other thing, you would learn pretty quickly that you can trust it, it'll tell you when she goes over that 130 and then do something that's just a glance, but I need you to be more relaxed.

Unknown Speaker 48:49
I want

Alina 48:51
you to have this, you know, I have a younger son who needs my attention also. So that's another wrinkle is that I I literally spend more time with my daughter than with him. And I'm always feeling guilty about it. You know,

Scott Benner 49:11
all you got to do is move that high threshold down and find

Alina 49:14
the answer to all my problems. It actually might be

Scott Benner 49:17
it because it because think seriously when you think about it. Like I'm I'm not looking at Arden's blood sugar right now Arden's blood sugar's where I know it is I've done something she like I told you she was a little elevated. We've done something we've put insulin in. Insulin doesn't work in the first 10 minutes, the first 15 minutes it's not going to bring a 160 down to 90 and in the next half an hour. Because I haven't used too much I know how much I've used I've trust but what I've that what I know is going to happen. So I don't think about it again. And and if I look up at it again, it would be an hour later but even at that. If it's not beeping, then she's not over 120 and she's not under 70 in it. If she was dropping fast, then there are alarms for that you have the quick drop alarms on.

Unknown Speaker 50:05
Yeah,

Scott Benner 50:06
so if it's not beeping, you're good. You know, let go a little bit, just a tiny bit, pretend that alarm is your glass of wine. Just sit back with it and relax when she's in that range, just nothing else counts. That's what I want for you. And I want you to figure out a way to trick your husband into going upstairs and bawling at night.

Unknown Speaker 50:28
Oh,

Scott Benner 50:31
I always I don't always do it, but I do it a lot. And it's because I'm the one involved. Do you think that's more why you're the one that goes up? Because it's still your shift. Like for, you know,

Alina 50:41
if anything, he's the one that goes up, but a couple of times that I have

Unknown Speaker 50:47
really bothers you when it happens. Do

Alina 50:49
I want to watch my reality TV shows and in peace, which one? I like the housewives I like to hear them argue because it's so outrageous.

Scott Benner 51:02
Guys, I'm going to be at the dancing for diabetes touched by type one event on May 18. in Orlando, Florida, if you're in the area, I highly suggest that you come out. There are going to be a lot of wonderful speakers there. I mean, I'll be the best but there's gonna be other people that Chris Rutan fel is going to be there, you know him. He was on the show recently. Anyway, I don't know what everybody else is going to talk about. But I'm going to talk about being bold with insulin, to talk about how to use insulin to get the results that you want. All you have to do is good at dancing the number for diabetes.com to sign up. And by the way, if you make a suggested donation of $10 between now and may 17 2019. Put the word juicebox. In the notes of your donation, you will be entered in a drawing to a win a phone call with me where you can ask me absolutely whatever you want to people when a 45 minute phone call, one lucky person is going to get a one hour call with a 30 minute follow up to great organization be a great place to make a donation. And who knows you might get lucky with the phone call. Unless you don't want to talk to me. And then just make the donation and don't put in the word juicebox. By the way, if you don't want to make a donation or you don't have access to the internet, you can mail in your entry. Isn't that fancy? Again, you can get all that information, you know the dress and stuff like that at dancing the number for diabetes.com I hope to see you in Orlando on May 18 it's gonna be a lot of fun. I got some swag to give away too. might be some magnets or buttons or something like that. You never know. Dancing for diabetes.com

Alina 52:50
Yeah, you know, I'm actually we're both lawyers. So we deal with a lot of heavy I deal with domestic violence victims. So we deal I deal with a lot of heavy, heavy issues. So when I get home, I just want a real uncomplicated

Scott Benner 53:05
my wife my wife says the same thing because my wife's a very bright woman and sometimes some of the things she watches on television throw me off about her a little bit. I'm like, why are we this invested in Big Brother? Exactly. She's like, because there's nothing to think about here. She's like, this is as petty and silly and stupid as anything in the entire world. Amazing. I can laugh at these people and then walk away.

Alina 53:29
Or like teen mom. I'm just like yelling at the girls like How can you be so stupid?

Scott Benner 53:37
I don't watch a ton of reality television. But one time I'm dying to say this on the podcast for some reason. There's one reality show about I think Amish people.

Alina 53:46
Yeah, right. Breaking mamas.

Scott Benner 53:49
I don't know. All I know is I saw it one time

Unknown Speaker 53:51
and I like

Scott Benner 53:52
this girl left like you get this ROM something like there's

Unknown Speaker 53:59
you know,

Scott Benner 54:00
you don't I'm talking about the word right? And so she's away from her family. And someone asks her about how she keeps her teeth clean and so white and she shows them she has like a gallon of bleach and she just oh no toothbrush in the bleach and brushes her teeth and I'm thinking

Alina 54:18
well, that's entertaining.

Scott Benner 54:19
You know what I was mortified and entertained at the same time. I was like that person is brushing their teeth with straight bleach. I know that's not okay. And by the way, I don't know for sure. But let's just go out on a limb and say that's not okay. That's very dangerous. You don't put bleach in your mouth, right? But she was just all like, and as I was watching, I was like, boy, this is fun. I have to admit it was weird and fun at the same time.

Alina 54:45
My poor husband, he just watches sports on his phone. That's half the time.

Scott Benner 54:49
But he sits with you, right?

Alina 54:51
He does out of love.

Scott Benner 54:52
That's a guy. Yes. See, that's good. You guys are still only been together like what I'm guessing now. Seven, six,

Unknown Speaker 54:58
almost Nine years. Yeah.

Scott Benner 55:01
Well, if he hasn't stopped sitting with you after nine years, I don't think he's gonna stop.

Unknown Speaker 55:05
Oh,

Scott Benner 55:07
yeah, he's the best. He's got his phone off to the side trying to watch a basketball game and you

Unknown Speaker 55:13
tell him it's too loud.

Scott Benner 55:16
are you yelling at the teen moms? What's the most egregious thing that teen moms do? By the way?

Unknown Speaker 55:22
They keep having more kids. Oh,

Unknown Speaker 55:33
well, I guess that is their biggest mistake.

Unknown Speaker 55:35
glom on it.

Scott Benner 55:39
Well, now though, they're making money, aren't they? Like, isn't that they're living now being a teen mom.

Alina 55:43
Oh, still quick, really terrible men?

Scott Benner 55:46
Well, yeah, well, who's gonna like destroying children's lives that I know is true. Okay, so I gotcha. All right. So yeah, if you're on a reality show about being a teen mom, I'm gonna go out on a limb and say you're probably not doing like a great job for you. Although they are making money, like I guess it's better than not making money, right? Oh, my gosh, they're having work with different men from them? Yeah, well, I guess if the what the first guy can't afford the first kid, he's not gonna be able to afford the second one.

Unknown Speaker 56:18
Yeah, you

Scott Benner 56:19
got it. So let me ask you a question because, and not to deviate too far.

Alina 56:23
While you're talking about your job. You're an attorney and you work with domestic issues, or battered women? or What is it you work for a domestic violence shelter, and I'm in the legal headquarters, and I help

women with restraining orders and cuts to the divorce issues, to all of the most dramatic things you could think of

Scott Benner 56:44
that is really important and beautiful work you do that that's to be congratulated? Have you always been in that, in that part of

Alina 56:52
law always really enjoyed Family Law just a lot more meaningful to me than like, slip and fall? Yeah, on the street?

Scott Benner 57:02
Hello, how long have you been doing it?

Unknown Speaker 57:05
Let's see. 10 years?

Scott Benner 57:07
Do you get a real feeling every day? Like you're helping people?

Alina 57:10
Ah, I mean, I'm real, I am really impacting their children's lives. So once I've had children, I started really thinking about the children the effect of, you know, abuse on them less also on the on the mother. That's not really politically correct to say, but I'm thinking a lot about the children. And like, what effect it has on them. It's how it strikes you personally, when

Scott Benner 57:33
you're when you're looking at the situation like the moms, that story is terrible, but you It feels, I guess multiplied for the children.

Alina 57:42
It is. So I find that like my duty to protect them. So I'm trying to help the moms make the right decisions to protect their kids.

Scott Benner 57:52
That's really wonderful. Seriously, that's the I mean, I'm assuming as a lawyer, there are things you could do that would probably make you more money. So that is that is really, that is really wonderful of you. And now we're gonna get you to protect yourself a little bit, right? So we don't want you all freaking out all the time wondering about blood sugar's high alert. Moving down. By the way, here's the other thing about the high alert. Can we talk management for a second here at the end, there is data that shows that the lower your high alert is the lower your Awan CLV, because you react sooner to blood sugars with less insulin. So let's say with the high alert pushed all the way up where it doesn't beep until it's 400. And it's left for you just to go back and check and check and check if your blood sugar should jump up sometime in those if those blood sugar jumps up inside that 40 minute window where you're not looking. And it ends up going from where you saw it last time, say at 90 and nice and stable. And all of a sudden that jumps in it goes 120 150 180 it's jumping up straight up and

Unknown Speaker 58:52
down. For sure.

Scott Benner 58:53
Right. And not only is it harder to get down, but you use more insulin to get it down and we use more insulin, you end up low later, which is why I end up saying a lot of times at highest cause can cause

Alina 59:03
Well, we've been using like since I've listened to your podcast. We literally went down from an 8.1 a one C and then two endo appointments later. She's a 6.9. That's and so we're like I'm really utilizing what you say about stopping the arrow and not waiting three hours and Temp Basal micro Bolus saying so if anything, sometimes I feel like I'm too aggressive.

Unknown Speaker 59:31
That's okay.

Scott Benner 59:31
I mean, I understand you'll figure it out.

Unknown Speaker 59:35
And so

Alina 59:38
I really yeah, I really been using what you said. And at first I thought no way that when I first heard your podcast, I thought it doesn't apply to me because I thought the only way you have Artists Agency so low is you probably give her like low carb tasteless food. Because that's what I had seen. Some of my acquaintances do get them like sugar substitutes. And that was like not appealing to me or to my daughter. So when I heard she ate like regular food that was like a big breakthrough moment for me like, Wow,

Scott Benner 1:00:12
well, I'm going to tell you then then moving your lower threshold, your higher threshold down isn't just for you, then it'll be for this. It'll help you with this as well. It will, I think, the sooner you react, the less insulin you react with, the quicker your blood sugar comes back to where you want it. And the less chance you have a low later. So, you know, practice on the weekends at first, but I'd start around 150 and then shoot for 130 eventually. Mm hmm. Yeah, absolutely. Well, we have been close to an hour. And this was very chatty, which I liked. But we didn't really talk about anything specific. So did we not cover anything that you want to talk about?

Alina 1:00:48
You know, just that the challenges of having a child with type one who's very high energy and little and six years old. She, she recently had a fracture in her foot and had to not run around so much. And her numbers were so stable. And it made me realize how much it's just her running around. That is making everything chaotic.

Scott Benner 1:01:14
Okay to get well exercise does bring can help bring your blood sugar down. So when you have less exercise, you could see it be more. I mean, was it stable, but higher?

Unknown Speaker 1:01:27
ranges? Great, perfect.

Scott Benner 1:01:29
Perfect. Well, listen, then tie those kids that kids feed together when she gets home and tell her she's got to sit on the couch and watch teen mom with mommy

Unknown Speaker 1:01:37
and daddy. Yeah. Well,

Scott Benner 1:01:40
I hear what you're saying the activity can really make a difference. And especially when it's not like a sport, right where it's

Unknown Speaker 1:01:47
not planned,

Alina 1:01:48
she'll just randomly run around. And that's what's so hard with a young child. Like I can't predict what she's gonna do next. Exactly. That's

Scott Benner 1:01:56
exactly what I was gonna say is that it's not it's not like it's it's not like it's a soccer game between two and four. It's she's sitting perfectly still. And then all the sudden she's running around like a lunatic. And then she comes back down then does it again again.

Unknown Speaker 1:02:09
Exactly. How do you know?

Scott Benner 1:02:11
Yeah, wow, please. I had kids. Member a little more mellow than that. But they still did crazy stuff that I thought like, Where did that come from? Like, they were just over here. Now they're gone. You know? Yeah. Well, listen, should get a job one day that'll come right down. To take all the fun right out of everything. Oh, my gosh. Well, thank you so much for coming on. And just to tease a little bit, right, I'm gonna, I'm going to be interviewing the first teacher you met at the preschool that went well?

Unknown Speaker 1:02:42
Oh, yeah.

Scott Benner 1:02:44
The first aid right. And, and she's gonna have a little more knowledge about Type One Diabetes now than she did even when she was with Laila. Is that right? Yeah, okay, cool. All right. Well, thank you very much. Thanks also to Omni pod dancing for diabetes and Dexcom, you can go to dexcom.com forward slash juicebox. My omnipod.com forward slash Juicebox. Podcast dancing the number four diabetes.com. To find out more. There are also links in your show notes, and the Juicebox podcast.com. Don't forget, if you make a purchase at real good foods calm and use the offer code juice box, you'll save 20% on your entire order. Let me take a moment to thank everyone. April was the most popular month in downloads ever in the history of the podcast. And that is month over month growth that has been going on for well over a year and a half now every month, stronger than the month before. And that is incredibly important as we come up quickly on what will be the 1 million downloads of the Juicebox Podcast. And when that happens, there will be a celebration. With prizes and giveaways and fireworks. There probably won't be fireworks. But there will be giveaways and prizes and stuff to do. I cannot believe 1 million downloads is coming this year. It's It's insane. I don't know what the most popular diabetes podcasts in the world is. But if I had to bet on which one was I think I know where I put my money. And that is because of you guys. That's because you share the show with other people on social media. I got I see you guys do it all the time. Facebook, Instagram, you're always sharing the show with other people. And I can't tell you how much I appreciate that. It just is the reason that the show continues to grow and flourish. You guys are helping me. I hope I'm helping you. I will definitely be back next week. Oh, you know what to and here's a good enough place to say this. Remember when I said the diabetes protip series with Jenny was going to be 10 episodes. Forget that. Jenny's gonna keep coming back. I don't know how many episodes that will be by the time we're done, but it's gonna be a lot more than 10 thanks so much for Listening and I'll see you next week.

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