#167 Juniper Eats Carbs

Junebug eats carbs.... lots of carbs!

Juniper was diagnosed when she was just two years old. Today we hear Junebug's story from her mom Lisa's perspective. They even tried to eat low carb for a while but (spoilers) they switched back. 

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello and welcome to Episode 167 of the Juicebox Podcast today's episode sponsored by Dexcom and Omni pod, you can use the links in your show notes, or at Juicebox podcast.com. To find out more about both of these great products, you can also type into the browser if you want my omnipod.com Ford slash Juicebox Podcast dexcom.com forward slash juicebox. Quick note, this is Episode 167 168 also went up at the same time. So if you don't have it, check for it. It is my Dexcom g six review with the senior vice president of r&d from Dexcom. Jake Leitch so it's not your average review show. It's way better. We dig deep into a ton of stuff. Just go get it. I promise. It's really good. Today's episode is with Lisa Poole, Lisa's junipers Mom, you might know Lisa from Instagram where she runs an incredibly vibrant and exciting page called T one Junebug. Let me just leave a little silence here for all UT one Junebug fans to maybe Hoot and holler a little bit in your car. Go ahead. This episode is really cool. We're going to talk about a lot of different things about management style and you know, type one diabetes in general, and a little bit of Juniper and Lisa story. But also, Lisa, at some point moved Juniper to a low carb lifestyle and then moved her back from it. So you're going to get to hear about that entire experience being diagnosed, eating regularly, then going low carb then coming back from low carb. Nothing you hear on the Juicebox Podcast of course should be considered advice medical advice. Always consult a physician before making changes to your medical plan. Here is Lisa. Key one

Lisa Poole 1:48
super early here where I am so hopefully I don't sound too tired.

Scott Benner 1:51
What time is it?

Lisa Poole 1:52
It's six in the morning here.

Unknown Speaker 1:54
Well, I'm so sorry.

Lisa Poole 1:55
No, you're good. It's not like we get sleep anyways.

Unknown Speaker 1:59
Oh my god.

Unknown Speaker 1:59
I feel terrible.

Lisa Poole 2:02
No, no, I usually get up at six anyways, but I I got up at five and grabbed a coffee and left my house because it's noisy in my house.

Unknown Speaker 2:11
Oh my gosh.

Lisa Poole 2:13
They're good. I am Lisa Poole. I have five children. My youngest daughter is Juniper. She has type one diabetes. She is five she'll be six in about three weeks. Okay, Jennifer six.

Scott Benner 2:29
How we'll drill a 505 almost six. Excuse me? How old your oldest.

Lisa Poole 2:35
My oldest is 17. I have two boys. 1517. And I have three girls who are Juniper five. Addy is eight. And Penelope is 10.

Unknown Speaker 2:45
Oh my gosh. Very

Scott Benner 2:46
nice. That's a lovely family. Um, I have to ask right off the bat from my experience with the podcast. Are you a Mormon?

Unknown Speaker 2:54
No. Okay.

Scott Benner 2:57
Every time someone comes on here, they're like they have like 9000 kids. I'm like, you're a Mormon, right?

Lisa Poole 3:03
No, we don't live in Utah. We live in San Diego. We had two kids. And then we have three and why not go for four and then. And then we had five and we're like, wow, we are crazy. Like it is total chaos.

Scott Benner 3:18
I think the weather must be nice. There's something you need some another you got some, like depressing months or something like that, where everybody just looks at each other and like no, no, thank you. Right.

Lisa Poole 3:29
Now they are great kids, but they're there's always something.

Unknown Speaker 3:35
Yeah, no kidding. So

Scott Benner 3:35
okay, so Jennifer's, um, she's diagnosed when

Lisa Poole 3:39
she was diagnosed right after her second birthday.

Scott Benner 3:43
Arden was exactly the same. We were about three weeks after her birthday. I think

Lisa Poole 3:47
we were about two months after her birthday. Okay. Wow. Not not on our radar. At all. Of course. Yeah. on anyone's ever Yeah,

Scott Benner 3:56
no one's like, you know what I think's coming this year. We're gonna get that sidewalk fixed and someone's gonna get diabetes. Right. Right. So no, no, I hear you. It was it did it present in basic, the basic ways.

Lisa Poole 4:09
Looking back, it was all very clear sometimes, you know, during, and it was probably like a two week build up where I look back and the symptoms are crystal clear. Yeah. But it was summer it was August. It was really hot out and I was like, Ha she's drinking a lot. And and that just kind of kept increasing. And then she was sleeping in our bed with us so and she would wake up in the morning and her pajamas would just be soaked. Like she would soak through her diapers and I thought Oh, she needs some bigger diapers and she's outgrown that size. That we got bigger diapers and she continued to do it and I think it was the night before she was diagnosed. She woke up just crying for water and drank an entire sippy cup of water like in the middle of the night. And still it didn't quite clicked something serious was going on. The next day I remember we went to Starbucks, because you need a lot of coffee with five kids. And all my kids wanted to get a hot chocolate and June sat there and chugged a hot chocolate, which was another leg. That's weird. And it wasn't until the day the day she was diagnosed, my husband took her out of the house to go visit some friends. And so I had a quiet moment to Google some of her symptoms. And, and that's when it all started to kind of come together. But I still, you know, she was playing and acting healthy and she didn't look sick. She was kind of cranky, but you know, two year olds are cranky. Yeah.

Scott Benner 5:45
Yeah. Well, five kids, you might have thought one of them's gonna be a clunker. personality wise, maybe it's just her. Yeah, she was

Lisa Poole 5:53
always pleasant. But I thought, you know, I wrote everything you can write off as something else, like the crankiness. I was like she's teething. She's not sleeping. Well. It wasn't until the night before we went to a back to school event for my older kids. And she was crying for water, and they had food tracks. And so I'm searching for water, and they've sold out of water. And so they have this, like little juice, soda thing, but I thought, okay, my three girls can share it. And June, just sat there, chugging it, and another lady noticed. And she said, Wow, she is so thirsty. And that's my thought that's, you know, when someone else is noticing that your kid is excessively thirsty, maybe there's a problem. Yeah, so I started Googling and, you know, have that quiet moment. And it's still it just was not on my radar that my two year old could possibly have diabetes. But I called her pediatrician anyways, and I and I told the nurse, I said, these are her symptoms. And, you know, I'm, I don't feel super concerned. But I feel like maybe we should see what's going on. And she didn't seem super concerned. And we were going into a holiday weekend. So it was a three day weekend. And we couldn't make it into the office before they close. So she said, just come in on Tuesday morning. And we'll see what's going on. And thank goodness, the doctor called me back after the office closed, it was about 530. And he said, You know, I would just feel a little better if you would just take her to an urgent care near you. And ask them to check her her blood sugar. And I was like, Okay. And we are still not really concerned. I left. We had just arrived to the pool, because it's middle of summer with all five kids and my husband and I said, I'll be right back. I'm just going to run her down the street. It was literally like a mile away. We're going to get her checked out. And we'll be right back and we'll come swim.

Scott Benner 7:46
And there was still no part of you is like don't put the other four kids in the pool just yet, just in case.

Lisa Poole 7:51
No, they were already swimming up. Like I don't want to ruin your fun. We'll be right back. We arrived at urgent care. And I could tell the doctor there seemed like I was a little bit wacky, like my two year old looked fine. She was not acting sick. But she humored me and said we would check her urine and she was still in diapers. So they they put like a little collection bag in there so they can they can test and she came back and I just the whole her whole demeanor had changed. And she didn't say anything about the test she just said so we're gonna do a finger poke and just see what that says. And so they did a finger poke. They actually did a toe poke. And the meter just read Hi. Yeah. And now they're scrambling around looking for the pamphlet that comes with the meter to see what high even means. Because I don't think they've ever seen that. And I I knew that was bad. I had no idea what a blood sugar reading should be. But I knew it shouldn't be high.

Scott Benner 8:52
Was it? I remember saying on here once and I think I've said it here. But when we did it with Arden's we ran out and bought a meter. And the high was a chai like it was the screen was so small. And I and I I literally when it happened, I thought oh, how cool is that? That they make the meter? Like say hello to you before it tells you what your blood sugar is. And I kept staring at it go now when is the number coming?

Lisa Poole 9:14
So I thought about going to buy a meter but I thought I don't know what a blood sugar. I'm not going to know how to interpret that number because I had no I had no clue. Right? And so at that point, she said so your daughter has type one diabetes, we think we're gonna we want you to go straight to Children's Hospital. And so we I gathered up my kids from the pool who are still wet and dripping and we threw everyone in the car and drop them off at their grandparents house and got her down at Children's Hospital. And they were waiting for us and once we got there I could tell how serious things were. The mood was definitely you know, went from she's totally fine to she is not fine, and her blood sugar was over. For 801, we only got admitted. So yeah, we spent the next four days there, we talked him into letting us leave a day early because there are other kids were starting school and we didn't want to miss their first day of school.

Scott Benner 10:12
But your story is so incredibly similar to ours.

Lisa Poole 10:16
Yeah, I've heard you tell our story and a lot of

Scott Benner 10:20
a lot of similarities. That really is it's a, it's a, I don't it's, it's, I don't know what it made me sad. Like, when you were telling it, but it wasn't for you. It was for me, I usually I'm empathetic, while we're talking about like, Oh, this reminds me of a bad part of my life. And and everything you said, step four step makes sense, like the idea of writing off things that are right there in your face, because it could be something else, that's such a normal thing

Lisa Poole 10:46
to do. And the symptoms aren't talked about, I don't think nearly enough. And so I was, I really had never heard any of the symptoms, or the fact that my two year old could even get diabetes. And I think there's a huge lack of awareness for people who are not connected to the diabetes world somehow that like what sometimes to even look for an a child, which is why I I'm always trying to share and unfortunately, we had a friend who later on was diagnosed and she recognized some of those symptoms, because we talk about them a lot. And try and share and, you know, I just there needs to be a change in the amount of awareness that's out there, and people actually looking for those symptoms.

Scott Benner 11:28
But we did an episode a few weeks ago, with beyond type one, and they're really pressing, to get posters and information into pediatricians offices, and they're having really good success with what they're doing.

Lisa Poole 11:39
Right. I listen, that was, that was amazing. It was really cool.

Scott Benner 11:44
So you get out of the hospital for a couple days, you ship your other children off to school. And what's the next step? Like? How do you begin to be as it's only three years ago, right? Three ish years, maybe a little more

Lisa Poole 11:56
now. So the summer will be four years for her.

Scott Benner 11:59
Right? So what did they send you home with? Did you have a like, was it needles? Was it pens, what did they give you?

Lisa Poole 12:05
So we had needles, they sent us home on three different insulin. She was doing Lantus and novolog, and NPH. That was not fun. So for a two year old, she was on a very strict eating schedule. So she really freaked out in the hospital, like, like any two year old, which he really hated the shots. Like it took a couple of us to have to hold her down and, and do the shots. And it was just, it was horrible. And so they're, I think their thought was with the mph, we can eliminate a couple of shots during the day. And so she had very strict eating schedules. So like she had to eat breakfast at seven, and she had to have a morning snack at 10. And then she had to eat her lunch at 12. And then she had an afternoon snack at three. And then she had her lunch at five. And then she had an evening snack. Break two year old who before this was allowed to just snack when she wanted to. You know, she always would just kind of snack through the day. And it was it was really hard. I remember the first week home and all the other kids went to school and she wanted a banana which she had been able to eat the week before. And I had no idea how to dose for it. And it wasn't time for her to eat. And so she laid on the ground and cried for 45 minutes and I I literally did not know how to make that happen for her. Yeah. So you know, I don't think that a strict eating schedule for a two year old was such a good idea. such a fun idea.

Scott Benner 13:40
No, I was just at something this weekend where people were speaking and some people would had diabetes for a long time. And they this one person described the same idea of like, you know, I had to eat at certain times and certain amounts of food like one starch one car one this like, like it had to be fat in it. There was actually Carrie Sparling, she writes a blog called six until May it's a really popular diabetes blog. And she said that there was supposed to be a certain amount of fat in her diet. And her mom couldn't figure out how to get the fat or diet she would just give her like a tab of butter and make her eat it Oh my god. Because but because of the same thing I think you're describing like that, like how do I make this happen the way I'm supposed to do that kind of like insecure. So not knowing Yeah,

Lisa Poole 14:27
yeah, on top of it, each meal had to be a certain amount of carbs. So each meal was supposed to be 45 carbs. Each snack was supposed to be 10 carbs and I remember telling them in the hospital. This is more food than she eats now. And so we were trying to like add extra carbs to her food and we would dose her before and then she would eat only half and so then we'd have to make it up with juice and I remember being really stressful trying to like we were forcing extra carbs in her Yeah, your whole day. And then when she wanted to eat certain amount of carbs, she couldn't because it wasn't the right time, or it wasn't, it didn't fit into her food schedule. And so after we were home, we did that for a few weeks, and they actually had us calling in every single day. For almost the first two weeks, we would call in at night, and tell them what her numbers were. And then they would make adjustments to her insulin because she was all over the place. And I pretty much figured out by the end of the two weeks, they were just guessing what the amount should be. But they kept lowering it and lowering it, and she was having a lot of really scary lows. I remember our first week home, and she, it wasn't, I wasn't supposed to test her yet. You know, I'm, I'm still only testing her at the times that told me to test her and she, she wouldn't act low. And so she was playing and I decided to test her I think she would tell me when she was that little she would say I so tired Mama. And then I would know like, I better test her. And so she was 32. And she was just playing like nothing. And so very quickly, they rushed getting a deck on her, which was a really good move for us. Yeah. But she had a deck on within within a month of being diagnosed. Well, that's,

Scott Benner 16:21
that's fantastic. But it Yeah, but what you described First, I want to go back to that idea of like, okay, you know, inject this much and give us a call because we don't know what we're talking about. And then and then Hey, why don't you try this? Like, you know, when somebody starts saying, why don't we try this? You're in trouble?

Lisa Poole 16:40
And just guessing Yeah,

Scott Benner 16:41
right. And you picked up on it really quickly, which is good for you.

Lisa Poole 16:45
I still for it took me a while to learn that I could make adjustments and that I could do it, that I would know her better than they ever would. And it took me a while to figure that out that they really didn't know any more than I did.

Scott Benner 17:02
So the barrier to making that decision. Do you think

Lisa Poole 17:06
for me deciding that? Yeah, like

Scott Benner 17:08
what do you think held you back like the first time you had the thought? What do you think held you back from just making the decision and making, you know, adjustments on your own?

Lisa Poole 17:18
I just don't think it occurred to me that, that that's what we could do. I think once I realized that they sounded like they were guessing. And I thought Why? I could guess too.

Scott Benner 17:32
And I'm here, so I might have a little more idea.

Lisa Poole 17:36
But you know, I look back at the stuff they sent us home with like, her ranges, they had her and they didn't want her going to bed unless she was under the shade to be over 180 to go to bed. So if say she was 150 they wanted us to give her a snack before bed. To me, I've never seen blood sugars. I don't know what I'm looking at. I like I followed them for a short amount of time thinking that was normal. And definitely realized at some point that was not normal. We do not go to bed at 180 anymore.

Scott Benner 18:12
And that was just a fear thing. decision.

Lisa Poole 18:16
I think for them, they wanted to keep her safe and and that was safe. But really it's not.

Scott Benner 18:23
Right. Right. It's safe today. Not safe.

Lisa Poole 18:25
Let's say it's Don't Don't let her die tonight, but isn't really healthy for her body. So the interesting thing about her is after about each week, the insulin levels kept going lower and lower. And add up after about five weeks, I ended up taking off all insulin completely. Oh, she had she kept having so many lows, that it just kept decreasing and decreasing until they pulled out all insulin. So no lantis nothing. And like the second they did that I I ran with it and we switch to low carb. And I figured if we can however long we can keep this going. The better like you know for a two year old to even have a few days of not having to get shots that seemed very appealing to me. So we switch to low carb. And she stayed off all insulin for eight months.

Scott Benner 19:25
Wow. So that her honeymoon was really long then. But something it

Lisa Poole 19:28
was long and I think we prolonged it with the foods we ate and yeah,

Scott Benner 19:35
how did you do? How did she do with that at that young age? Like what are some examples of foods she would eat the low heart

Lisa Poole 19:42
so for her she didn't. I don't know that she knew much different. The whole family started eating that way. I would. I would bake a lot of foods we would make stuff like with almond flour and coconut flour and stevia I try and make her treats and like a lot of nuts and few berries, we cut out a lot of fruit at the time now looking back at it, it looks and it feels really restrictive at the time it worked. And to me the trade off was you eat these foods and we don't have to take a shot. So it worked at the time.

Scott Benner 20:24
Well, the whole thing had to be incredibly overwhelming for you, because you're you're describing first of all you have, I think I forget now 43 kids, and and then now you have a lot of children and, and other responsibilities on top of those children. And, and now you're, you know, she's eating at certain times, and that's not working, and then all of a sudden, she doesn't need insulin anymore. And you go to this low carb, and you're baking and you're cooking and did this thing complex most of your life.

Lisa Poole 20:51
Yeah, I pretty much lived in the kitchen, which at the time, it felt worth it. Honestly, I mean, it seems silly now. But everything I wanted to read everything and, and family and friends were sending me information about how the care is like right here. Like, if we can just make it a little further like the cure. Is this any day now? I don't live like that anymore. And but you know, in the beginning, you you kind of hold on to this hope that maybe this won't be your life forever.

Unknown Speaker 21:21
Yeah, no, no, I really understand.

Lisa Poole 21:24
I really don't. Yeah, I kind of had this feeling that if we can keep this going for a while then maybe she'll never have to go shots again. They'll have this cure by the time your honeymoon ends. And it'll just be that easy.

Scott Benner 21:40
I'm so do you. I don't know, how was it crushing when you realize that wasn't what was gonna happen? Or did it just kind of kick you into another year of we need to take care of this in a different way? Maybe,

Lisa Poole 21:56
I think it was gradual. You know, while we while she was off insulin, like low carb was the answer. And yeah, going back to why we chose low carb going out there and searching for support in mind at finding some Facebook groups. And it seemed like there was two sides to the Facebook groups. So you had the one more mainstream where you had people saying I just let my kid eat whatever they want. But then they're, they would show their graphs and the numbers would be insane. And I would think I don't want that. And then I found the low car groups where they were really restrictive. And this is what they eat, and they don't eat, but their graphs were beautiful. Yeah. And so with the information I had, I felt like those were our only two options, it wasn't an option to let her eat whatever she wanted, and have good blood sugars. And so to me, I knew as much as I wanted her to be a kid and eat what she wanted. I didn't want her to have these wild, horrible blood sugars. And to me, I didn't realize that there was another option that she could eat other foods and have good blood sugar at the same time. You know, so you do what you you do what you can do with the information you have at the time. And so those to me, it felt like were the only two choices.

Scott Benner 23:15
No, I understand. So, I don't know. I've never looked into like a low carb option for Arden. But But I did find something online recently where this person was saying, you know, here, look, this is my kids horrible graphs, you know, before we went low carb and here's my kids graphs now, just as you described, Rocky Mountains on one side, the other side was like 86 and perfect the whole day. And I thought, Okay, I see your first of all, probably pick the best graph you've ever had in the worst graph you ever had to make your point. But I understand still the point is valid, right? If you you know, restrict carbs, enough. Your blood sugar is not going to go out much if you're using insulin, but all it made me feel like was like, Listen, if this is a choice, I don't care, like make let me be perfectly clear if you don't eat carbs. I don't care. But But you know, but but don't say this is what diabetes is with carbs, when you clearly don't understand how to use the insulin to stop that from happening. Because then that's that's a disservice to people because then you give them that feeling of either or it's either horror, or it's joy. There are no other options. And that and that's what you saw, right? Which was

Lisa Poole 24:28
Yeah, it's one of those were absolutely It was like those were our only options was have horrible blood sugars and let her eat whatever she wants, or have really good blood sugars and have a very strict diet. Yeah, I didn't see that there was another option really until I started listening to your podcast. And it just kind of opened my eyes to like, hey, maybe we can eat like we did before we were diagnosed and have good blood sugars at the same time because I'm not willing to to put our health That risk just to let her eat different foods. Yeah, we'll see if I can do both like, Yeah, let's do both. Let's eat normally and have good blood sugars. And that's what we do now. Absolutely. Oh, much better I spend much less time in the kitchen.

Scott Benner 25:17
Um, well, first of all, I am glad for you. And, and I'm thrilled that you've you found this out, I'm a little extra mushy about it, because I just got a little I just got back two days ago from giving a talk to a roomful of people. And this is what we were talking about.

Unknown Speaker 25:32
I

Scott Benner 25:33
love that you found it. And I love that it's that it's helping you but I'll say that it's just a sad. Oh my god, Arden just I texted her that I wanted her to bumper bazel and her and Bolus a little bit. And she didn't see it. So I waited like a long time and I reset it again. And she goes dead. A human can't possibly answer in that amount of time. I think she doesn't understand that the there was a large gap of time in between when I said it the first time and she did. So anyway. So yes, a human as she gets older responses get more thoughtfully jabby

Lisa Poole 26:17
I'm sorry, I get my teenagers daily and think I hope they don't get diabetes. because that'd be a whole nother challenge.

Scott Benner 26:26
Yeah, right. Different. A different person's perspective is so different. And, and I know the same thing, like my son's a teen, and even though he's been around diabetes pretty much his entire life. He wouldn't be like, oh, okay, I know what to do. He would be one that would go kicking and screaming. So

Lisa Poole 26:43
Oh, yeah. My my son.

Scott Benner 26:45
Yeah. And I get it, by the way, but

Unknown Speaker 26:47
yeah, totally. Yeah.

Scott Benner 26:49
So but I'm sorry. But to go back to the idea of, I find it heartbreaking to think that you've felt or that other people feel caught in that situation like that, there's because I would do the same thing. By the way, if I thought that I would feed Arden, you know, dust I scraped off the countertop with salt sprinkled over. And if I thought that was gonna keep her healthy for the rest of her life, you don't mean like how some of the foods might taste?

Unknown Speaker 27:13
Yeah.

Scott Benner 27:16
I don't want to say but I've had a couple of those. And wow, Holy God. Unless I could use one less carbs in my life, we all could, I think on one level another. But there's a difference between the lower carb and no carb, like no carb is, like you're talking about like almond flour nuts, like you're talking about stuff like that, like this is a very specific

Unknown Speaker 27:40
diet at that point. Right. And

Lisa Poole 27:44
it limits a lot of your options, like we would avoid a birthday party, because oh my gosh, they're gonna have cake there. And I like it, it got to the point where I didn't even know how to dose for those foods, even if I wanted to give them to her. I think the further down the road, you go of low carb, you're dosing for such tiny, tiny amounts of carbs, if you're even dosing at all. That's a thought of dosing for like a piece of birthday cake. Like I didn't even know how to do it, right. So it took a lot of experimenting in the beginning and and we're still we're still learning, make sure that you know different foods, I try and look at it as like, I remember one of the first not low carb foods, we went out and met some people and she had pizza. And she, I think she might have hugged her pizza. If you could tell it was like the best thing she had ever eaten, which made it totally worth it. But her numbers were not great after but instead of thinking I failed at this, and we're never going to eat that food again, I just took it as a learning experience for what to do differently next time. And most of my learning experiences where I need to dose more. There was a lot of fear in the beginning of dosing such large numbers when we had not been dosing like that before. Yeah. You know, set a dose for five carbs, which might be something we did before now we're dosing for, like 45 carbs, and the despair over

Scott Benner 29:10
Yeah, the disparity between the amounts of insulin was probably shocking. I would

Lisa Poole 29:14
write Yeah, and those first few times felt really scary to dose that large amount. But the more we do it, the more comfortable we are at figuring out what dose works for different foods and how much she needs. And you know, each time we just learn a little bit better how to dose better for that.

Scott Benner 29:32
Let me ask you, how long ago did you start listening to the podcast?

I love finding a suspenseful place to put an ad. Actually, I got this note one time from this one person who was really mad. Okay, I'm always listening and then something gets interesting and then you cut off and put the ad in. I think if you every time I do that. I don't know who you are. I don't remember your name. Remember this suspense bothers you. Alright, that's enough, I used up most of the add on that, I'm gonna have to start the music over, hold on. Today's first ad is all about the dexcom continuous glucose monitor, specifically the G six. In the very next episode Episode 168, you're going to hear a 45 minute long conversation. That's my review of the G six plus conversation with the Dexcom, Senior Vice President of r&d. I think it's really insightful about how and why the G six is, in my opinion, a leap from the G five. But for now, all you need to know is this, if you want to know where your blood sugar is at where it's going, and how fast it's going there, if you want to be able to see that remotely for your loved ones. If you want to be able to make the kinds of decisions that you hear us talk about on this podcast everyday decisions to keep blood sugar stable and low to take away spikes. And if a spike comes make dealing with a spike easier, if you want all of that data, all that information that helps those decisions be so easy and painless, then you really do want the Dexcom g six continuous glucose monitor, you can go to dexcom.com forward slash juice box, you can click on the links in the show notes, you can go to Juicebox podcast.com, and click on the links. But one way or the other, you need to get yourself some more information about the Dexcom continuous glucose monitor. And those are the ways to do it. Most of the things that I accomplished with my daughter's Type One Diabetes with her a one C's, which at this point now are four years of 5.6 to 6.2. I could not accomplish those things without the dexcom and without the Omni pod. But the ad today is about Dexcom. So let's focus on that dexcom.com forward slash juice box with a link in your show notes or Juicebox podcast.com. Do it you will be happy you did.

Let me ask you how long ago did you start listening to the podcast?

Lisa Poole 32:05
maybe a year and a half ago. Okay.

Scott Benner 32:08
And you're still you're still figuring it out? Right? I'm plushy still small. It's, I mean, five or six years old is what would I mean? I'm guessing

Lisa Poole 32:18
piny 30 5038 pounds.

Scott Benner 32:20
Wow. Okay, so she says so little bits of insulin have a big impact on her she doesn't have a ton of body fat to distribute the insulin with and stuff like that. So it's, it's a it's a bit of a slog, right, right, trying to figure it out all the time. But But I love what you said about not giving up and just taking Hey, this is what happened. And now we'll just make an adjustment for next time. I I have to say it made me smile when you said it was like she would almost hug the pizza is like that's

Lisa Poole 32:48
oh my gosh, we if she had an extra piece that she she wanted to bring home with her. And like she had to hold it. She didn't even want to put it in the box to bring it home with her.

Scott Benner 32:59
She's like, no one's taken this from me.

Lisa Poole 33:02
Yeah. But it was at that same time that I thought oh my gosh, I don't want to give her these food issues of like, she needs to hoard her food because she might never eat pizza again. And I noticed that a lot when we first switched over, like she was so excited to eat a certain food that she had never had before, or it had been a really long time since she had. And I don't see her doing that anymore. Like it's just not as big of a deal when we have a tree eater, and she gets to go get an ice cream or whatever, which is what I want. You know, I don't want her to have any kind of food issues. I remember one of the first podcasts I listened to that you had was a lady you came on and you guys discussed diabelli Mia. And I thought oh my gosh, I do not want her to grow up with any kind of food issues or just any issues with food.

Scott Benner 33:54
Yeah, yeah. So that was a big changing point for me of I need to figure out how to dose her and get over being fearful. So that she doesn't think any differently if there's a given taken there. I mean, there's gonna be times where I go through it, you know, periodically, we put a pump on yesterday, that just must not have been a great place for it. And it took a while for it to start working the way I wanted it to. I don't know if it was in a muscle or you know, too close to a muscle or some whatever. And so I adjusted the insulin and we're good now but first number of hours wasn't great. And we came up on a meal. I was fighting like this 150 blood sugar trying to push it down. And then the meal came and I was like okay, I'm pretty certain this isn't going to go well but I'm not going to ask are not to eat this food. So I just gave her you know, I over Bolus then I covered it the best I could and eventually a broken or I got our blood sugar back to where I wanted it to be, but I think it would have been much more dangerous to create a conflict with the food than to let her blood sugar be one ad for a couple hours. Like, you know, that, to me is a trade off, it's worth making,

Lisa Poole 35:07
we run into that a lot being five years old, sometimes she just doesn't have the patience to wait for, for Pre-Bolus like I would like to all the time and, and so it is a balance of like, just eat it and I'll figure out the blood sugar and maybe I'll increase your bazel. Or I'll figure out a way to make it work, but just go ahead and eat it. And, you know, hopefully as she gets a little older, there's a little more understanding of maybe waiting a few minutes or getting the timing better. But it's tricky when you're five and you don't want to wait for that snack. Yeah.

Scott Benner 35:40
How about now how about I, there's a couple you can get away with, you can get away with under Pre-Bolus Singh and over bolusing you don't mean like trading extra insulin for less upfront time. But there are some foods that are just, you know, it doesn't work as well, like you can't, you can't make that trade off with a bowl of cereal. You know, for instance, he you know, that'll cause a low later, you'll have to use so much insulin upfront to stop like, you know, Apple Jacks from from doing something like that, that later you will get low. But

Lisa Poole 36:12
one of the meal I can sneak in the Pre-Bolus before she even know she's waiting, you know, as I'm making the food or after we order the food. And then when it arrives she can just eat and to her. She didn't wait at all right? I got the Pre-Bolus in and it all worked out great. It's usually with a snack, which tends to work out better anyways, without as big of a Pre-Bolus.

Scott Benner 36:32
That's interesting. And you're making me think of a story someone told me this weekend. So I wish I knew who told me this now I spoke to so many people this weekend. But somebody was telling me they had a friend with a like a toddler. And they Pre-Bolus the meal. But one time the Pre-Bolus got out of whack and the kids started falling before the meal was done. So she gave the kid ice cream, like an ice cream sandwich or something like that, right? And then the kid figured out, right? Like, I this is how I can get ice cream. And it became it became like an issue. And so you're saying that you can get away with Pre-Bolus in a meal because you know the meals coming but snacks. If it's just a snack, there's no cooking time for the snack like okay, you push the buttons not give me the thing in the package or the or the banana or whatever it's gonna be. And that's really kind of interesting. What kind of pump Do you have is a pump? It is

Lisa Poole 37:28
we have we are on Omni pod.

Scott Benner 37:31
So she No, but she knows when you're you can't do it without her noticing,

Unknown Speaker 37:36
I guess.

Lisa Poole 37:37
Oh, I can't. Just Yeah, well, that's the currency doesn't really pay attention to what I'm doing. Oh,

Unknown Speaker 37:45
no kidding. Okay.

Lisa Poole 37:46
All right. Yeah. Sometimes I have to ask her to come closer, because she's over somewhere playing and that they won't read that far. And usually, she's not really paying attention to what I'm doing.

Scott Benner 37:56
I wish there was I wish you all could have seen, like, pay for people of Omnipod, just to be with a reasonable distance of the pod to to use the, you know, the PDM.

Unknown Speaker 38:06
Right. And like, we have to be so close. Well, some days,

Scott Benner 38:09
I'll tell you the pump that Arden was wearing last time, I felt like they had to be touching. And the one before that I can stand in my dining room and do it through the floor up into our bedroom. So it's like, you know, some of them are, you know, different. Maybe that's where they're shielded on their body. I have no idea. But what I was going to tell you is that many many, many years ago, we were contacted by on the pod and they were working on the new PDM which at this point now is the old PDM it's about to be replaced. And I got we they asked for Arden to come down and Phil apod and do everything they were just trying to they needed data on little kids using the PDM for the FDA. So Arden goes down and she does it. And the guy setting up the fingers, hey, do you want to see something look what they've done with the distance. And he took the pod walked out of the conference room, we ran down the hall went into another conference room push the button, he said go ahead and deliver a bolus with it. And it was working like 40 feet away. And I thought, oh god, this is amazing. And then when it got back to the FDA, the FDA made him restrict it back down to us to a closer distance. And I was like a

Unknown Speaker 39:16
farmer,

Scott Benner 39:17
but I got to see it for one afternoon. And it's it would have been really cool. I don't know why the FDA made them do what they did. But I have to admit it would have been great if it worked at distances like that.

Unknown Speaker 39:30
Yeah. So

Scott Benner 39:33
anyway, I'm sorry, I got off on a bit of a tangent. Maybe remember this very happy about where you could Polish from anywhere in the house. Because at that distance, I probably could have like set temp basals from my bedroom. And that'd be perfect. That was exciting to me the idea of not getting out of bed but okay. Yeah, yeah. So let me so. So when you look back on low carb in your in your experience, and you look at how happy She has to have things that are not low carb, is it? Is it a flavor thing? Do you think like, what do you think is the difference?

Lisa Poole 40:07
The taste better? You know,

Scott Benner 40:10
white flour. Good.

Unknown Speaker 40:13
carbs is good, you're right.

Lisa Poole 40:19
I think part of it is just the freedom thing of like, being able to go out if we want to or like, hey, let's all go get an ice cream or, like having the piece of birthday cake at your friend's birthday party. Just the freedom to like I'm not scared to dose for any food that she that she wants to eat. You know, within reason I don't let her eat birthday cake for breakfast. But sure, you know, it just the freedom of being able to we're not scared of food. Where I think there was some fear before, like, I don't know how to dose for that, or we can't eat that. And now there's just that new freedom of we're not held back from food or what the food options are.

Scott Benner 41:04
I always worry, like my bigger like concern is and maybe it's unfounded, I have no idea. But if you spend your whole life eating that way, and you know, insulin is just this thing you give in tiny little bits and you don't, you know, to your description, don't really know how to Bolus for other, you know, items with more carbs. And what happens when your kid becomes an adult or goes to college or goes away for the weekend. And everybody's like, I'm eating pizza, and they're like, I love pizza, I think Let me try. And then the they are wildly unprepared for how to manage that food with the insulin in any way. Right? Like, I think you should understand as much as you can about diabetes, because you it's easy as a parent to look at your five year old. And you have more children or you have an older child too. But when you have little kids and just little kids, there is a time in your life as a parent, where you have this very unreasonable expectation that you are building the exact person that you mean to be building and that they're going to launch out into the world exactly as you mean for them to be, you know, and it doesn't really work that way, you know, like you're building a foundation for a human being, they're then going to leave your house, immediately, the bright sunshine of freedom is going to hit them and they're going to start making their own decisions. Hopefully, they'll make them sort of in line with the things you've been telling them. But it is unreasonable to think they're going to continue being your eight year old for the rest of their life. Which by the way, is not something you would actually want to begin with, even though it feels like it's what you want when they're eight, right?

Unknown Speaker 42:34
Yeah, having

Lisa Poole 42:34
a 17 year old, I cannot clearly understand what you just said. Yeah. So yeah, there's, they're gonna become their own person, and they're gonna do what they want. Yeah,

Scott Benner 42:46
and they need tools. Right? So they can't, everything can't be and you can break it down. If you forget low carb, it can be anything. I'll tell you right now my my son's 18. He's gonna leave for college in Gosh, if I cry, don't hold it against me, me. My son's gonna leave for college in less than four months. He's going to go to a school and he's gonna play baseball there. So he's been talking through social media with all the other boys were coming in on the baseball team. And they're all trying to get to know each other. But moreover, they're trying to find roommates. And, and my son comes to me about two weeks ago, and he says, I think the guys are all getting ready to like pick roommates. Like I have to figure out who I want now. What do I know how my son's gonna do? Like, my son's not a drinker. He doesn't run around and party like all this stuff. Like he's a pretty and I know people think oh, yeah, you think that but you're gonna have to trust me on this one myself that this is who he is. And so he comes to me one day after school, when he's texting with this kid. He goes, I think I found my roommate. He goes, we agree on religion and politics, and he doesn't drink either. And I was like that the part of me who thinks that I might be able to launch my eight year old and Phil world exactly the way I want them was like, I'm winning. I'm so winning right now. But still, that doesn't mean that's, you know, I don't mean to say that six months from now my kid's gonna come home with like, a fairly horrible drinking problem and a heroin needle in his arm. I don't think he's gonna go that far. But but to think that he's going to get through college without ever wondering what a beer is, is a little unreasonable, you know, and so I've given him both sides of the conversation, not just the side that I want him to stay in. And I think about that with the low carb, like, you can't not understand insulin. And, and if you're just But listen, I've had days where my daughter is sick, and she doesn't eat. Diabetes is really easy. If you're not taking in carbs. It's you know, it's super easy, actually. And so when you're sick, and then it just sort of that whole curveball of diabetes doing what it wants to do low Can I tell you, I'm very lucky Arden doesn't get low when she's sick. So it's just dumb luck on our side. Like when my daughter gets a head cold, I'm like, oh, four days off from thinking about bolusing. Because she, her blood sugar stays incredibly steady. And she doesn't need as much insulin for reasons that I don't understand in any meaningful way. But

Lisa Poole 45:13
then five days in the hospital because she was, had a tummy bug, and she couldn't keep anything her blood sugar, even if she would eat, she wouldn't absorb anything. So, you know, you don't feel like you're like eating when you're throwing up. But she would be throwing up and then I would have her eat something and she would eat 5060 carbs, and she would still be in the 50s. Wow. So we had her, her bazel turned off by 85%. And she was still like in the 40s 50s. So they had his turn her pump off completely, which was not, I don't think the best idea. And I even told them that. And so we did. And then of course by morning, she had large ketones, and she was in the beginning stages of decay, even though her blood sugar was in the 50s. So we added we spent five days in the hospital where they could have glucose in our IV, and it was the only way we could keep her blood sugar up.

Unknown Speaker 46:10
Well, that sucks.

Lisa Poole 46:12
Yeah, yeah, I'm sorry. She says they have really good chocolate pudding.

Scott Benner 46:18
Can you imagine how easy it is to buy off a five year old?

Lisa Poole 46:21
Like, if we could go next time to the hospital? And I don't get the IV? I'd be totally cool.

Scott Benner 46:26
Yeah, just the pudding. And then we roll in an hour. Oh, I'm sorry. I know that does happen to a lot of people where he just like Arden has bouts where her blood sugar will hit 50. And, you know, it won't come back up. It feels like no matter what you do, but these are a handful of times a year. And it only lasts for an hour or so like we don't have like that kind of. But I know a lot of people do.

Lisa Poole 46:49
That was by far the worst. Yeah. You know, it happens sometimes.

Scott Benner 46:52
Isn't it funny to like the situation that you got put in? Because when they said shut the pump off, you're like, that's not a good idea. We always need insulin, even if our even if. And yeah, and yet you felt like I'm assuming there was just no other option at that point.

Lisa Poole 47:08
Yeah, I think it was like, here's your last option before coming into the hospital. And let's give it a try. I knew it was not a good idea. Yeah. But at that point, I couldn't turn her pump back on either because I couldn't get her out of the 40s even while she was eating. So we couldn't give insulin. So once they got the IV and the glucose running, though we could give her some insulin. Because she had to glucose in her IV. Yeah. Oh, balance down.

Scott Benner 47:33
Yeah, well, maybe that's a little bit a function of her her size too. And her age and right, maybe being a little bigger will help you with that. And plus, you know, there is this other thing to like, you know, we've only ever experienced what I think is it's not it wasn't DK in the way that was told to me by a doctor. But we had a pump failure overnight one time. And Arden woke up in the morning and she gets out of bed and she's like, I don't feel good. And I'm like, okay, and we test and her blood sugar's in the three hundreds, but it's not overly high. But still, I'm like this shouldn't be so I look at the pump and the pump the candle like kinked or something, or I don't remember what it was, but put a new pump on got insulin going. And she was sick to her stomach. And I said, Look, I said to my wife, I'm like, in the amount of time I think this is been, she's gonna have to go the hospital, you know, like this and check her ketones or ketones were were out of whack. And my my daughter's like, I don't want to go to the hospital. Is there anything I can do to avoid going to the hospital, I said, Okay, if I give you a couple bottles of water, I need you to drink them. I'm going to bolus an incredible amount of insulin. And when it happens, and it's going to happen, your blood sugar is going to fall when you're not feeling well still, I'm going to absolutely need you to have to force some food in to catch to catch this. I said if you think you can do that, then I'll try it. And she was old enough to make that decision. Like I will eat sick, you know what I mean? But if she was younger, she would have never I couldn't have even had that conversation with her. You know what I mean? Like and she definitely wouldn't have been able to pass it because drinking the water almost killed her. Like like she was drinking water and she was like, like, Look, we can just go to the hospital. She's like, I'll drink the water and I'm like, Okay.

Lisa Poole 49:29
I actually had a very similar conversation with Juniper.

Scott Benner 49:35
In a life where so much is difficult. Something needs to be easy. Something needs to be an oasis. I think the AMI pod tubeless insulin pump is that oasis in a desert that is type one diabetes, to be able to get your instant delivery to be able to control your rate of basal insulin without being tethered to something to me is huge. I know when people Think about moving to an insulin pump, the first thing they think of is I don't want to be attached to something. And on the pod keeps you from feeling attached. Because there's no tubing, there's no device that you're tethered to nothing that you have to wear on your belt or jam in your bra or something like that. It's just this little tiny pod that just adheres to your skin, and it's got everything it needs right inside. I think that's nice. I think that it's nice for something to be easy and just work. Right? Don't you need that sometimes? Don't you just need something to just do what it's supposed to do? Do it well, and do it without being a burden. I feel like that all the time. Just sometimes you're like, oh, can't something just go the way it's supposed to? Well, the only pod will go the way it's supposed to. And you know what that's saying a lot for a medical device. It does what they say it's going to do, it does it well, and it does it without burdening you go to my on the pod.com forward slash juice box, or click on the links in your show notes. Or at Juicebox podcast.com. And on the pod, we'll send you a free, no obligation demo that you can try for yourself. You don't have to believe me, you can actually hold it and decide for yourself.

Lisa Poole 51:22
I actually had a very similar conversation with Juniper. So she had been sick for about two days before. And each time she would not eat or drink something, I would have to have the talk with her. Like we're gonna have to go to the hospital. And if you can't drink this juice, because you're we cannot get your blood sugar up and she would always choose like, okay, I can power through, I'll drink this, I'll eat this. And it was the morning that we went into the hospital where she just she was like, I can't and I was like, we're gonna have to go to the hospital. And she was like, okay,

Scott Benner 51:48
like, that's how you know, she really can't.

Lisa Poole 51:50
I was like, Okay, yeah, that's, that's the sign we need to go. You know, even being at five she was making those choices. And she definitely reached the point where she was like, I'm done. I can't do it. Well,

Scott Benner 52:01
that's Listen, that's pretty heady for a five year olds. Just be like, okay, I've tried and now I'm done in. Yeah, I guess it proves. I guess they do grow up too quickly, when they when they have diabetes, for sure. Hey, so are you from California originally?

Unknown Speaker 52:18
I am. Do you say what? Well, I

Scott Benner 52:19
feel like I'm saying water incorrectly. When I'm speaking to you, I my kids. My kids have made me completely like mental about a couple of words from the Philadelphia East Coast area. And I'll say it, there'll be like you meet. So I live in a place. It's like a meeting point in between a bunch of areas. And because of the kind of businesses around here, it draws people in from a lot of different areas. So my kids don't have the Philly accent. I grew up with, you know, things like sports, like you know, where I grew up, people watch the Eagles play football. You didn't watch another team play football. But around here, people are giants fans, they're you know, some people like this, they like that they Oh, cowboys and Patriots are like that kind of an idea. And my kids are not thrown off by it. I'm like, you know, as a child, we would have beaten those children for for liking a different football team. And so it's the same with dialects. There's dialects coming in from everywhere. And now my children know to correct my my bad pronunciation and

Unknown Speaker 53:21
no funny.

Unknown Speaker 53:22
I think about it now. And the podcast is fairly good. I'm

Lisa Poole 53:26
sorry. Our kids are only so quick to correct us if we

Scott Benner 53:29
Yeah, it's not nice. And the podcast is incredibly popular in California. As a matter of fact, I think if I had to, if you want to take a detour for a half a second with me, yeah, I think of all the states of the in the United States. It is, I think, the most popular in California. And I don't know, I don't know why that is exactly. It's interesting. But it is yeah, it is true. I'll use just this month or two the last 30 days and I'll look real quick. faraway.

Unknown Speaker 54:10
Maybe

Scott Benner 54:13
I'll see maybe triple the next closest state in downloads. Hundred. I don't know if it's the sheer size of California or if I've always wonder if it's if there's more progressive thinking that, like I can never figure out exactly what it is like when you share your idea with another person with diabetes. If they're like, hey, right on, I'll give that a try. Whereas if that happens somewhere else in the country, people are like, No, that's not what my doctor said. And I'm not gonna do it. I always wonder what it is if it's just the sheer size of the population or, or if there's something more sense a sense of a sensibility that's definitely

Lisa Poole 54:48
and he read it better than me interesting thing, trying to move away from listening to what your doctor suggests and or tells you to do and I think that's that takes a while. To, to figure out that you know, best. We actually had an interesting thing happened when Jane was in the hospital a couple weeks ago. And I battled a little bit with the the night nurse who came in and the things he wanted to do was just not acceptable to me. And he was going to check her blood sugar every single hour with a finger poke. And I was like, she has a dexa on like, why are we doing that? And there was a few other things. And so we, we definitely had some words, and the doctor came in in the morning, and I thought she was going to scold me for starting a nurse. And instead, she came and she was like, that was really awesome. What you did like that is so needed, you have to advocate and you're going to know your kid better than anybody. And in order to keep your child safe in the hospital like this, you have to be a strong advocate for them. And I think that is so important. And something maybe people don't realize that they they're going to know their child better than even the doctor sometimes.

Unknown Speaker 56:01
Yeah, it

Unknown Speaker 56:03
is just right.

Lisa Poole 56:05
Right, anyone, but you know, our kids who need us to be the advocate for them, and we do know them best, we're with them 24 hours a day, and I handle all of her diabetes care. So that was interesting. I was I was glad I was not in trouble for you know, I

Scott Benner 56:23
think Listen, I I advocate for that on the podcast all the time, like you absolutely have to just speak your mind without acting like a lunatic. You know, because it's easy for people to discount you if you seem crazy. So you know. And plus, you have to realize the situation you're in, you're in the hospital because something went wrong with your diabetes, you're like, Listen, I'm really good at this. And the person's probably thinking, are you because you're at the hospital. And,

Lisa Poole 56:47
Christine, when you go to the hospital, at least with the Children's Hospital we go to is every doctor that we end up with, they come in after already looking at all of our agencies. And so they came in and she was like, You clearly know what you're doing, and and everything well, like, we can see the circumstances that you're here for this reason. And you know, we're gonna let you have control of her diabetes while you're here. That's not why you're here. But I do think they see a lot of kids who are not well managed, and then they have to take over. So they could see that we were in a situation where they didn't need to take over her diabetes management. It was just that we needed that little extra help with the IV. And so they they let me still do like i'd handled all the dosing.

Scott Benner 57:27
Yeah. Isn't that it? That's incredibly That's an incredible insight into the process. Because

Unknown Speaker 57:33
Yeah, yeah,

Scott Benner 57:34
because they felt like they had a, you know, prize for the lack of a better term, they had a report on you. And then that report proved out that you must, at some level, know what you're doing. And so they felt more comfortable allowing you to keep going with it. Right. It's funny, because they were they came in and they were impressed with her. All right, when fee, so that was good. I do a similar thing with 504 plans at school. Every every year, we have a meeting, I take a minute to thank the school for their flexibility, because of what it leads to for Arden's health. And I show them, you know, numbers, I'm like, look here, this is, you know, here's, here's normal, here's where she is, you know that this is due in large part to, because you're allowing me to manage her the way we do through text messages while she's at school. And just giving them that idea that that the way they're treating me is benefiting Arden. It makes them they feel empowered, it's because it's interesting, because in the way we do it at school, I've taken all the power away from them, but they still feel empowered by it because the result is so good. Like, I've talked them into believing that their decision is better than their action. And and it's true, but I show it to them. I think you did a similar thing you didn't maybe they checked on you first and you didn't know. But I think it's good for other people to know that you can say, look, this is an anomaly. Most of the time, we're, you know, this is our understanding of it. And we need to be involved in the decision still.

Unknown Speaker 59:06
Right. Yeah,

Scott Benner 59:07
that's a it's a great point. I'm glad that came up, actually.

Lisa Poole 59:12
So while we were mentioning a one C's, I just wanted to tell you or anyone listening that, you know, we managed a really good agency was low carb, but we are now eating anything and everything and still have a really good agency. And so for me, I didn't think that was a possible thing in the beginning. And it is it's just about understanding how to actually use influence, and you can't eat anything. It's just not with the tools that they gave you in the hospital, you know, the tools they give us in the hospital. And then we walk out we try and let her eat normal foods and she would be 400 later and then we can't correct for three hours and it was a nightmare. Having the right tools like the Omni pod and the decks and then having a really strong understanding of how the influent actually works. You can, you can eat what you want and have a good day Wednesday, it doesn't need to be one or the other.

Scott Benner 1:00:05
I appreciate that. Can I ask you and you don't have to give me numbers. But what's the disparity between with carbs and without carbs? They once they like, what's the gap? Like? I don't know, went from five to nine or something like that. But what's the difference? Like the number of difference foods?

Lisa Poole 1:00:21
It's minimal. So her last three months, he's had been 5.9. And when she was low carb, she was about five point out of 5.1. Yeah, so we're not we're not perfect. We were still learning with different foods and mix still. I don't know if it's because the first sighs Yeah, sometimes it's not totally predictable. But we do our best and we know how to correct if things don't go right. Or I've definitely learned to use Temp Basal in the past year or so. Which is a game changer. Absolutely. Yeah, it's huge. Like, we figured out like Pre-Bolus, even when we go out to eat is really tricky with her because she can the timing of it and trying to time the food is tricky. And you know, we've done it before we're, the food doesn't come out in time and then dropping with double arrows. And we've got to like quickly find some other food for her to eat before it gets there and throws everything off. So now we'll use the Temp Basal sometimes. And we'll, I'll like increase the Temp Basal by 100%

Scott Benner 1:01:24
to get her bugs moving without ball, get

Lisa Poole 1:01:26
it to start moving without actually giving her a Pre-Bolus first. And then as it gets closer to where I feel comfortable, like, Alright, the food should be here in a few minutes, then I'll doser but then I feel comfortable that I can I can shut that off. If you know the food takes 45 minutes and she's dropping too quick. I can turn it off.

Scott Benner 1:01:44
We say you, you are my proudest moment. So you really, you really took to the information like really well that's it's such a so commendable. I'm, I have a question for myself, I guess. But two, I have two questions. So going back to what you said first, can you explain to people that while your daughter's eating carbs your graph is not perfectly flat? like it used to be with no carbs? Am I right?

Lisa Poole 1:02:10
It is not funny when we were eating low carb, we had a perfect straight line most of the time.

Scott Benner 1:02:15
But now there's some spikes, you get them back quickly and you still have a one to five line.

Lisa Poole 1:02:20
Exactly, yeah. You know, we we try and keep those spikes down using Temp Basal and Pre-Bolus seen but it's not perfect with with a five year old, like I was saying sometimes she doesn't have the patience or she wants to eat right now. And you know, we work around that and having the right tools like being able to, I don't know how you could do this without a pump. But having the tools like a pump to be able to to do the Temp Basal, so we use Temp Basal every day. And it helps so much with controlling those spikes. Or if we see she starting to trend low we can we can decrease what we use our Temp Basal is every day. And that's, that's been a game changer for us. And I just didn't understand how to use those. And really until I started listening to your podcast, and a lot of it is just experimenting, like not being scared to try it out. And the thing with Temp Basal is is you can always just shut it off. If you feel like it's not going the way you want it to go. I'm a lot more bold with a Temp Basal because I can shut it off at any time. So if I'm not sure about Bolus in a huge amount, I'll start with the Temp Basal I'll do a mix of the two. But now we don't have perfectly straight lines. But you know, if we do spike we come down fairly quickly. Like the other day, we had a huge spike she was playing and she pulled off just part of her pod. And we didn't realize it and she kept rising and bolusing heavy and she just wouldn't budge. And I finally looked and I could see that the candle had pulled out a little bit but you know it wasn't a like crazy panic moment. We fixed it she was got a new pod on Bolus heavy we set at Temp Basal and she was back down in range with you know, within a pretty short time. Nothing there's not such panicky moments anymore. We know how to handle everything. Yeah. And it's just learning to be comfortable with with trusting your skills and and using the tools you have. Like I hear so many people who don't have pumps who don't use 10 basals because they just don't understand them or they're scared of them and that is such a great tool to have and not use.

Scott Benner 1:04:28
Yep, it was my first thought when I got a pump was like wow, I could like be in charge of the basal insulin finally.

Lisa Poole 1:04:35
Yeah, yeah, I mean, like at night we've been using them. Like if I see your start to trend down and I can oftentimes catch it before she actually has to eat something in the middle of the night. Which is huge. I'd much rather just like shut it down and not have to be feeding her in the middle of the night. Yeah, it doesn't always work and sometimes we still have to feed or something but

Scott Benner 1:04:55
I tried last night so I template two examples of temples basals in the last couple of days one was Chinese food where I didn't think Arden looked as hungry as she was. So I thought she needed 11 units for the for the Chinese, right. So I normally would just give her 11 set up in some sort of an extended bolus and you know, work it out. But instead I gave her like eight of the units. And then I doubled up her bazel for like an hour and a half to make up the other three. And sure enough, like 40 minutes into this, like, you know, extravaganza with the Chinese food. I was like she didn't eat as much as I thought she wouldn't have just shut the bazel down, right. And it was perfect because the insulin wasn't in yet. And yet, we were still being aggressive up front. And it didn't result in a spike. And it was really a really good example of using it and then being able to shut it off last night. Last night, I did not I get sick in a very strange way I don't feel well a couple times a year, then I fall asleep wake up five hours later and I'm well again much to the My wife hates that about me

Unknown Speaker 1:05:57
the exact

Scott Benner 1:05:58
so I traveled this weekend, I came downstairs last night, I was doing the laundry last night because that is my job. And I came downstairs at eight o'clock ready to watch the Sixers game which they lost. So luckily, I didn't actually watch it. And I came down to the into the, into the living room where my wife was and I took a blanket and I jam myself into the corner of our sexual and I said I'm either going to be okay in a little while or this is where you're going to find me dead. And I like covered up. And and she's like whatever and whatever, whatever. And Arden had a little bit of a peak when I was when I was out cold. And my wife's not she's my wife's really getting it. But it's she's getting it slower because she's around at much, much less. And so she had a little bit of a peak and she got to come down. Well, when I woke up at midnight, completely healed by the way. I woke up at midnight, I kind of took over and I looked at her blood sugar was 72, which I was thrilled with. But you could tell she had been drifting down over a number of hours very slowly. And I looked at the 72. And I was like, Alright, I'm going to shut her base law for half an hour, I think I can catch this and get her back into like the 78 range. And I'll tell you what a new piece of technology kicked in. So we're using, we have the G six now the G six from

Unknown Speaker 1:07:15
now.

Scott Benner 1:07:16
You should be a little and I'll tell you why. So I shut the Basal off. And it's a little bit of a crapshoot at that point. Like I wonder if this Temp Basal is going to work because I got to it a little too late,

Unknown Speaker 1:07:25
right and

Scott Benner 1:07:26
diagonal arrow down 66 diagonal down. And that's a moment where I still would have gone back before with G five or before I would have said let me wait a little longer. And what would have happened is that little longer would have turned into 61 and then 55 and then a low. But instead instead the decks beeped and said. I forget exactly how it puts it right now. But it said that you will be at 55 sometime in the next 20 minutes. If you don't, right.

Unknown Speaker 1:07:56
I was like No, I was like,

Scott Benner 1:07:59
Oh, this is amazing. So I went in and I gave her like, three quarters of this tiny juice box. And boom 65 leveled off went to 7070 to 80 100 102 I think and it leveled off like 20 minutes later. And I was like, Oh my god, this is amazing. Yeah. And that. So now it's just like another feels like another tool. You know what I mean? Like another weapon to get right with. And it worked. So well. I was like, wow, that's fantastic. So I'm going to talk more about the JSX. At some point when I have a little more time with it, but

Lisa Poole 1:08:35
not wait to hear about it. We've got our order in. We're all approved. We're just waiting.

Scott Benner 1:08:41
I hear June, this will be out afterwards. So I can say I think they're going to start shipping more around June 1. And then

Lisa Poole 1:08:49
yeah, that's what they told me last week coming after that. pretty hot. And looking forward to it.

Scott Benner 1:08:53
It is pretty cool, though, I have to say, I'm actually going to you know, to go back to what we talked about about even when you're really in good control. You see, you see peaks during the day. I'm actually going to put the G five on myself and wear for a while just to see what it looks like when you don't have diabetes because

Lisa Poole 1:09:09
I've worn jeans decks before and it was interesting to see what a working pancreas looks like.

Scott Benner 1:09:16
Did it stop you from eating any specific foods?

Lisa Poole 1:09:19
was no I kind of wanted to challenge it and like see

Unknown Speaker 1:09:22
the challenge your pancreas? You mean you're like can you handle this? Yeah.

Lisa Poole 1:09:28
Let's see what you're gonna do with this.

Unknown Speaker 1:09:31
I'm incredibly amused by that for reasons I don't completely understand.

Lisa Poole 1:09:36
Yeah, it was interesting.

Scott Benner 1:09:39
your pancreas? Yeah. Fantastic. Well, Lisa, we are over an hour. You were fantastic. And I really appreciate you saying this. Because if if the low carb people hear this, they're gonna kill you.

Unknown Speaker 1:09:53
So

Lisa Poole 1:09:55
we've been banned from some low carb groups already.

Scott Benner 1:09:58
Did you did you try Let me ask you before we go, once you saw the other side, did you feel like this compulsion to go back and go, Oh my god, it's not true. And then they kicked you out.

Lisa Poole 1:10:11
They kicked me out before that. I say, see them eating pizza, they are banned. It's a it's a little, I hate to say it, and met some really nice people on those groups. But it's a little cold, like, like, and for a while, it was like, This is the only way but you you'd like step out of that cult culture. And it's, it's not and I I do wish that I could that they would look and see like it is possible to eat and how you want to eat and have good numbers. I think there's a lot of fear and, and dosing such large numbers. And there's a lot of thought that will it's just, it's safer to do it this way. Yeah. And, you know, I feel confident as being her caregiver that I am watching so closely all the time. That that she's not in danger. You know, I can always like you always say I can bump an edge things and I don't feel like she's in a dangerous spot for meeting normal foods, right. It's, it's not a dangerous thing to dose the amount of insulin that she needs. And it just it takes a while to get to that point. But yeah, I've been banned from some of those groups. And that's okay.

Scott Benner 1:11:27
They came after me once. I think I mentioned what was an art is lunch once and then I got hit pretty hard, but I'll say it again here in case you're listening. today. It's a grab bag of Cheetos. A full size bagel, a bunch of grapes. How many? I don't know. Let's see what else Oh, thin Oreos. I don't know exactly how many I just grabbed what appeared to be about two inches of them. And what else is in there? There's a carrot in there. And oh, a mixed fruit cup. But Low, low sugar,

Lisa Poole 1:11:57
some carrot for good measure. There's like counterbalance.

Scott Benner 1:12:00
I also I also Yeah, Cheetos in a carrot. You should see how this kid is she's

Unknown Speaker 1:12:06
covered. She's built

Scott Benner 1:12:08
like an Olympic athlete. She's just little and she's not little anymore. She's getting bigger, but she's very muscular. And I must be doing something. Okay. She's incredibly healthy. So

Lisa Poole 1:12:16
think you're doing very well.

Scott Benner 1:12:18
Thank you. And and so and how much will I give her for it? I have absolutely no idea. I'll just wing it throw some if it's not the right amount. We'll do more. If it's too much. We'll do last. And we'll just stay really fluid with it. And it's going to work out great.

Lisa Poole 1:12:30
Now that is the other thing I have taken away from you that I have to tell you, thank you. We used to measure everything. And everything was so precise. And and you say it still wouldn't be correct. Right? Right. Now it's so much more I don't measure anything anymore. It's all based on like the type of food she's going to eat. Like, how active has she been today? Do I think she's going to eat at all. There's no more measuring. And that's really nice

Scott Benner 1:12:57
for people listening, if you would all just figure out what Lisa's figured out, I could stop doing this podcast, and I would get a lot of my free time back. So everybody, please, whatever she did do it.

Lisa Poole 1:13:08
It's nice to not be so compulsive and, and anal about measuring every single like gram of food,

Scott Benner 1:13:15
hard enough time

Lisa Poole 1:13:16
measure, and then she's not gonna eat it all anyways, or maybe she's going to want more and what did you know, like, especially the five year old, you don't know how much they're going to eat, like, you know, start with a certain amount add more if they eat more, yep, you know, used to be like, I kind of panic if she wanted extras. And like, just you got to be able to roll with it. And having the right tools is, is huge. And being able to do that, you know, being able to just add a little extra insulin or increase the bazel or decrease it. Like if you didn't eat all of our food. It doesn't need to be like a panicky moment.

Scott Benner 1:13:50
I hope that it makes you feel better that the reason I was able to pass that on to you is because that used to be my life. Like I was like, I'd measure something and then she would need it and you were measuring back what she didn't need and then like how do I make up for this? And it's all just nonsense. But yeah, that is really

Lisa Poole 1:14:07
like I measured that out precisely you need to finish

Scott Benner 1:14:10
Yeah, and it didn't work anyway, right? Yeah, it's so I started my talk this weekend by looking out at a really nice group of people. I do have a full room which I was by the way for anyone who was there thank you because I saw some people speak to empty rooms and that's a horror I would not want but but so I started out by saying it's this type one diabetes thing. It's all about understanding the insulin it's all about timing and understanding the insulin once you've got that the rest of it just falls into place. And I'm just really thrilled that it worked out this way for you and

Lisa Poole 1:14:43
and not being scared to experiment and and try it don't look at it as a failure but you know as a stepping stone to doing better next time.

Scott Benner 1:14:51
I'm totally grateful for you coming on and saying this I I hope people understand that I do so little interaction with people who even want to come on the podcast that all I know Like Lisa told me, she's like, I want to talk about life after low carb. And I was like, cool, that'll be good. I genuinely didn't know she was gonna say that the podcast helped her with it. You probably don't believe that, but it's true. And, um, I just thought it was interesting to hear from somebody who ate low carb and then didn't. But this is

Lisa Poole 1:15:18
why I'm pretty sure we've officially been banned from any low carb. So we hadn't group that we had not been banned from before. But

Scott Benner 1:15:24
I have a Facebook group. You can come on, Lisa, it's fine.

Lisa Poole 1:15:28
All right. We have we have our own page. We have plenty of friends.

Unknown Speaker 1:15:33
You'll be okay.

Unknown Speaker 1:15:34
Yeah, we'll be fine. Well,

Scott Benner 1:15:36
thank you so much for doing this. I really appreciate you staying on extra time. I appreciate that.

Lisa Poole 1:15:40
Thank you so much for having me. It's fun.

Scott Benner 1:15:43
Cool. I couldn't agree more. I'm always grateful when someone comes on and shares their story so completely and honestly, Lisa definitely did that today. I want to shout out to Juniper Hey, Junebug, what's up, kid. Thanks for letting your mom come on the podcast. Thank you so much to Dexcom and on the pod for sponsoring the show, my omnipod.com forward slash juice box dexcom.com forward slash juice box with the links at Juicebox podcast.com. Where your show notes and you know what i'm on Instagram to Lisa can't have all the Instagram followers. I deserve some to write check me out for the podcast at Juicebox Podcast and for my type one diabetes blog at Arden's day. But you can also check out what Lisa is doing to and everything that junipers up to. She does a lot of cool stuff for a little kid. I put a link in the show notes for their Instagram T one Junebug. Thank you for listening to the podcast. Thank you for sharing the podcast. Thank you for rating the podcast. Thank you for being a part of the podcast by helping to build the community that the podcast thrives on. I'll be back next week with another episode.

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