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Arden's Day Blog

Arden's Day is a type I diabetes care giver blog written by author Scott Benner. Scott has been a stay-at-home dad since 2000, he is the author of the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal'. Arden's Day is an honest and transparent look at life with diabetes - since 2007.

type I diabetes, parent of type I child, diabetes Blog, OmniPod, DexCom, insulin pump, CGM, continuous glucose monitor, Arden, Arden's Day, Scott Benner, JDRF, diabetes, juvenile diabetes, daddy blog, blog, stay at home parent, DOC, twitter, Facebook, @ardensday, 504 plan, Life Is Short, Laundry Is Eternal, Dexcom SHARE, 生命是短暂的,洗衣是永恒的, Shēngmìng shì duǎnzàn de, xǐyī shì yǒnghéng de

Filtering by Category: Video Blog

Alberta Diabetes Foundation

Scott Benner

 

We were contacted by the Alberta Diabetes Foundation a few months ago.  Arden will be helping them with some fundraising later this year by lending some of her videos and photographs to their efforts.  I also made them this short video.

 

We look forward to helping them any way we can, they have a fantastic organization and if you live in Canada please consider lending them your support!  Alberta Diabetes Foundation

 

 

Arden Describes a Low Blood Glucose Seizure

Scott Benner

I had the camera out for something unrelated when Arden suddenly began to talk about a seizure that she experienced over a year before this was recorded.

Arden is three and half years old in this video, it's both heartbreaking and fascinating when you realize that she has a clear recollection of much of the event. Even more interesting is how she interprets the information. Hearing Arden describe the grunting noises that she made as her "turning into a monster" is particularly chilling.

Arden was temporarily blind and unable to speak during the seizure that she is describing. We were able to stop it in a few minutes with glucose gel.

Added 2015:

That was Arden then, this is Arden now. She is healthy, active and about as far from that little girl in the video as you can imagine.

I'm revisiting this post as a part of my podcast journey to relive Arden's Day from the beginning. Remembering the way that Arden's account of a low BG seizure (I've seen two and refuse to call them 'incidents') makes me realize why it took me so long to act boldly with insulin. I'm quite certain that as I move forward with this process of reliving the blog, I'm going to find that getting a Dexcom CGM is what allowed me to bolus with certainty while striving for closer to normal blood glucose readings. 

Please don't use this video as a reason to be scared or a way to convince yourself that fear is a righteous endeavor when living with type 1. Please watch young Arden and remember that while this was once our reality, it no longer is.

I desperately want your take-away to be...

They did it and so can we!


Six Months Worth of Needles

Scott Benner

 

I have been saving every lancet and needle since this site started on August 16, 2007.  Here is what they look like all in one place.  


 

The YouTube version of the video is here.

 

Consider making a charitable donation to the JDRF today.  

 

‘King of Pain’ as performed by Alanis Morissette is available at iTunes here.  The original version performed by The Police is available on iTunes here.  Please support the artist and join me in thanking them for not suing me for using their song without permission.

 

**

The following are archived comments from this post. You can post new comments below.

 

TM
That's ummm.... wow.
Monday, January 28, 2008 - 05:11 AM
Scott
Some comments from my email...

"This is amazing..really sends a message. "

"...that is so powerful and moving..."

"AWESOME video, very moving"

"I think it is really beautiful and sad and moving."

"That is Brilliant! Perfect choice of song.  "

"That is fantastic. Really. Very powerful..."
Monday, January 28, 2008 - 09:53 PM
This is very touching, and i really didnt know how much all these shots would add up to, how many does Arden usually have??

I am a type 1 diabetic, and my heat really goes out to someone as young as Arden, coping with this terrible disease, she really is the bravest little girl i have heard off. Although i am much older then Arden (12!) i still know how it is to live with Diabetes, but to try and re-assure you, it does get easier for the parent once the child grows up, so my mom says , most days i now give myself insulin and tset my own BG, we need to find a cure, to give all the sifferers their childhoods back, it isnt fair.

STAY STRONG ARDEN, a cure is on its way. xxx
Tuesday, June 10, 2008 - 04:20 PM
Scott
Emily,

Arden gets an average of 7 shots a day and 9 or 10 finger sticks, more if she has lows.
Sunday, June 15, 2008 - 07:19 AM
Thank you Scott. most people i know have 3 or 6, a girl at my school also have Type 1 and she only has 3 shots a day, one at 9 one at 1 and then one before bed.

Thankyou for replying to my question, and also thankyou so much for incuding my comment in one of your recent blogs, it meant to much to me to see that you read it and incuded it, thank you so much
Sunday, June 29, 2008 - 10:00 AM

 

 

Low Blood Glucose Isn’t Pretty

Scott Benner

Be prepared, the following is tough to watch... It broke my heart to turn on the video camera when I realized Arden’s BG was going low.  It was even harder to edit the video.  But I honestly think it’s worth sharing if it helps more people understand what living with diabetes is really like.  I meet too many people that ask me how old she’ll be when she grows out of it.  The sad truth is when other people see Arden she appears normal so people tend not to feel the seriousness of her situation.  Short of seeing her have a seizure the following video should keep anyone who sees it from being blasé about diabetes.

**

The following are archived comments from this post. You can post new comments below.

lalouque
Yowsa!   I gotta say, you might not have felt it, but you sure looked quite calm during the whole thing.  I thought giving an insulin shot to a cat was bad... you've got the patience of a saint.
Monday, August 20, 2007 - 03:00 PM
Anonymous
Just watched the Low Blood Sugar video... The "No Thank you!" broke my heart.
Friday, September 7, 2007 - 02:07 AM
Maria
I just watched this for the first time. The "no thank you" and "I'm feeling better" brought tears to my eyes.
Tuesday, October 23, 2007 - 06:48 PM
Anonymous
i have juvenile diabetes just like Arden and I can only imagine what it's like to be only 3 with it. I completely understand what you both go through in this struggle, and hopefully other people will see more to diabetes by watching this video.
keep your head up. i know a cure will be in her lifetime.
Wednesday, May 21, 2008 - 03:00 PM