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Arden's Day Blog

Arden's Day is a type I diabetes care giver blog written by author Scott Benner. Scott has been a stay-at-home dad since 2000, he is the author of the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal'. Arden's Day is an honest and transparent look at life with diabetes - since 2007.

type I diabetes, parent of type I child, diabetes Blog, OmniPod, DexCom, insulin pump, CGM, continuous glucose monitor, Arden, Arden's Day, Scott Benner, JDRF, diabetes, juvenile diabetes, daddy blog, blog, stay at home parent, DOC, twitter, Facebook, @ardensday, 504 plan, Life Is Short, Laundry Is Eternal, Dexcom SHARE, 生命是短暂的,洗衣是永恒的, Shēngmìng shì duǎnzàn de, xǐyī shì yǒnghéng de

Filtering by Category: OmniPod Blog

Arden is in the paper today

Scott Benner

Pick up today’s Trentonian to read all about Arden.  Great thanks to Sulaiman, the writer of the piece for all of the time and attention that he gave to our story.

 

 

The article is also online at this link.  If you like it, please take a moment to hit the FaceBook like button, ReTweet on Twitter or comment on the article at the Trentonian site, below at Arden’s Day - or do them all!

 

Lots of people are sharing the link on FaceBook today, thank you to all of you for being such wonderful supporters! Remember, it’s all about transparency and raising awareness.  Your support and help spreading the word makes Arden’s message that much stronger.  Have a great day!  One day when a cure is found, you will all have a place in saying, “I helped to cure type I diabetes”, I just know it...

 

If you’d like to make a tax deductible donation to Arden’s 2010 JDRF Walk, you can use this link 

http://walk.jdrf.org/index.cfm?fuseaction=extranet.personalpage&confirmid=87699113

 

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The following are archived comments from this post. You can post new comments below.

 

Way to go Arden!  What a little star you have :)  Thanks so much for all your advocating .. it's hard to believe I was in her shoes once at 6 years old (minus the pod of course).  Things were so different then and I love seeing parents like you getting the word out there now.  It makes all the difference!
Thursday, October 21, 2010 - 04:17 PM

 

 

Arden is on TV!

Scott Benner

Today Arden was interviewed about her type I and the OmniPod.  She spoke about how much she loves not being connected to a machine by a tube.  When they asked her what she liked least about about having diabetes she said, “I don’t like having high blood sugar because then I can’t eat”.

 

We think that it will be on TV in November for diabetes awareness month.  

 

Now I’m typing absolutely nothing so that they can tape me doing it. Sorry for all of the filler words. Now I’ll type whatever Arden says. “I don’t know, laughed, more laughing, I don’t know.  Now I am typing nothing again the camera guys says that we are almost finished with this part.

 

In a bit they will film her doing some yoga and hitting her softball.  I can’t wait for you all to see it.

 

UPDATE: The spot ran for the first time the other day.  Check it out here in our OmniPod blog.

 

Proud daddy post

Scott Benner

 

 


You may remember that Arden’s children’s hospital asked her to pose for some photos a while back.  The pictures may be used in their endocrine brochures, posters and stuff like that.  Well today the photos arrived in our mailbox and I just had to share some of them with you.  


Mad props to the photographer, Ed Cunicelli of Glen Mills, PA - www.cunicelli.com.  He captured Arden beautifully!  Chop takes such amazing care of Arden’s type I that we just had to help out when they called.  I don’t usually make pronouncements like this on the site but... if you live within any reasonable distance of CHOP you really must consider making them your child’s endo.  While I’m at it, Arden wore a sleeveless shirt purposely so that her OmniPod would be in the pictures - she is so proud to wear it!  Truth is, I don’t know where we’d be without CHOP and OmniPod, they both have saved us more times then I can count.

 

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The following are archived comments from this post. You can post new comments below.

Beautiful pictures of Arden, Scott! They capture her spirit. I love that they feature her OmniPod. We live just outside Philly but don't use CHOP, we use DuPont and Thomas Jefferson. I am glad you have had great experiences with CHOP and her endo, it's so important. Congrats on the pictures, they are just beautiful!
Sunday, June 6, 2010 - 01:25 PM

It's not the heat its the Glycemic Index

Scott Benner

Carbs, carbs, carbs, my entire life is counting carbs. I hate it! Some days I’m not good at it and other days I’m the carb counting champ of my town and the surrounding counties.

 

What a slog - This food brings you up quick, that one is no good for a low... OMG, don’t eat that before bed.  Scales and cups and measuring spoons, I see them in my sleep (the sleep I get between 3 and 6am).

 

Today my advice is quick and to the point...

 

Pick up the book, “Pumping Insulin” and turn to page 82.  Read and re-read it until you understand what Glycemic Index and Glycemic Load mean.  Read page 82 until your silly face falls off, read it until you can recite it, read it until people start talking about you right in front of you because they think you won’t hear them as all you do is read page 82 of Pumping Insulin.  When you’ve finished just sit back and watch your A1c go down.

 

Say it with me, “It’s not the carbs, it’s the Glycemic Index”.

 

After you’ve mastered page 82, flip back and read the entire book, it’s the surest way to improving your insulin pump skills.  If you don’t use a pump... well, I think you should get one if at all possible.  I’d rock the OmniPod if I was you.

 

If you missed my other additions to blog week... my day one blog is here, day two is here and day three is here.

 

I’m not affiliated or compensated by any of the products that I mentioned, they are just great and in my opinion the way to go.

 

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The following are archived comments from this post. You can post new comments below.

Hi!  I'm new here.  My son was diagnosed in early March. 

Question....first, we're not pumping yet, so I don't have Pumping Insulin, but I am reading Using Insulin by the same author.  So, I'm learning about tlycemic Index.

Here's my question....at one point in the book, he says it's best to try to avoid eating foods that have a GI above 60.  Do you do that with your daughter?  Do you give the insulin earlier?  

Thanks!
Thursday, May 13, 2010 - 06:20 PM

Scott
We avoid them as much as possible and pre-bolus meals as best as we can. Right now Arden is a little too young to trust that she'll always eat everything on her plate.  Pre-bolusing definitely cuts the spike out of a BG rise.

We hope to have a CGM very soon to aid us in understanding the way different carbs react in her body.

Stay tuned!

Best to you,
Saturday, May 15, 2010 - 10:46 AM

 

 

Basal the low away

Scott Benner

It’s day two of Blog Week, today’s writing assignment is how to treat a low BG.

My wife and I sat in CHOP’s pump class listening to the trainers tout all the reasons why insulin pumping was the way to go and we were on board with all of them.  My daughter Arden had type I for about two years by this time, Arden was diagnosed just after her second birthday.  She is a tiny little thing, on the day of her diagnosis she weighed just seventeen pounds.  By the time we reached this pump class I had become a master of injecting dropsof insulin and I was adept at playing, what I refer to as, the scale game.  I think of diabetes management like the scales of justice but the scale trays have holes in the bottom in my version.  You put some food on one side and it takes the scale off balance, so you add some insulin to the other side.  Sometimes the food runs out before it should and then the scale gets too heavy on the other side and so the day goes like a teeter-totter, gaining and losing riders. All I have to do is stand next to it and add the needed ballast to the proper side.  Just that easy.

But back to that pump class.  The trainer came around and asked if we had any questions.  People had tons, about activity, swimming all the newbie questions that pop into your head. I only had one question, I wanted to make sure I was understanding basal rates correctly, I asked, “am I reading this right, can I shut off the basal rate?”

The nurse said, “yes” and with that I was sold.

To me dealing with a low as a MDI patient was particularly disturbing because of the slow acting insulin that is active in the body.  Anyone that has used Levemir or Lantus will tell you that it seems to “burn” faster at times for no real reason, making it wildly unpredictable.  The notion that I could just stop the background insulin was amazing to me.  I now do it all the time, sometimes to slow a fall, sometimes to keep a BG level and often I do it just to buy me more time.  I’ll give you some examples:

(Literally), our school nurse called just now, it is time for recess and Arden is 64, too low.  It’s been 2 hrs and 30 mins since her last bolus and she is eating lunch in 30 minutes. If she wasn’t going to recess a would shut her basal off and retest her before lunch. Her are my reasons; we are well past the peak of her last bolus, she isn’t going to get any lower without insulin.  I bet if I shut off her basal right now and sent her back to class (she has no symptoms) she would be 90 at her pre-lunch test.  But she is heading out to play so I gave her a small candy (13carbs) and turned her basal off for 30 minutes (the basal isn’t probably needed here but I’m gong to trade a slightly higher BG for the nurse’s sanity).  This will counteract the activity and address the low.  She’ll be back before lunch probably at 160.  If I’m still writing when they call back I’ll put the BG (here). UPDATE: Nurse just called, Arden is 165 before lunch and after recess.  I’ll leave this space empty to receive your applause {          }.

Last week Arden was trending very low all evening, she was in the 120s before bed and I expected the lows to continue, so I tested her at 1am.  At 1am she was lower then I had anticipated (64) so I shut her basal off for an 90 minutes and went back to bed.  When I tested her at 2:30 she was still in the 60s, a stubborn low.  This next bit is a great example of how you can use restricted basal rates to control BGs.  At 1am Arden hadn’t had a bolus in 5 hours, so there is no residual insulin from the 8pm bolus left.  She is falling because of her basal.  Now I know that you may think the basal is just too high but please trust me it isn’t, this is an isolated anomaly.  Now the last thing I (any of us) want to do is wake up a 5 year old with a low BG at 2:30 in the morning and ask her to eat or drink, so I didn’t.  Instead, I’m going to take what the previous BGs tell me and use it in conjunction with the upcoming ‘dawn phenomenon’ against the low.  I also lend some credence to the knowledge that our meters have a 20% window of accuracy and with Arden her “real” number is usually higher then the meter indicates by 10-15 points.  So I’m betting on a few things; her BG is probably more like 75, which is less scary, sometime after 3am her liver is going to start making glucose and there is absolutely no insulin left in her body.  So I shut her basal off for a further 3.5 hours and went back to sleep.  The next day I woke up early at 5:30am to check her BG and she was 125. I win!

I figured that there would be a barrel full of knowledge handed out today about foods that bring up BGs.  I have my favorites as well but to be honest, if your BG is falling fast you need a fast acting carb, if it’s stable but low you can use something a bit more slow acting that won’t cause such a severe spike.  None of this is brain surgery.  If you really want to jump to the next level of care... learn how to manipulate the basal rates to get you where you need to be.  For my money, the best feature of Arden’s OmniPod is being able to restrict or shut off the basal rate.  It’s the best way I know to control a low.  

Here’s where I tell you that I’m just an idiot with a computer, not a doctor and taking my advice may significantly shorten your or your child’s life. For the love of all that is holy do what my wife does... and don’t listen to me.  

Seriously, you should talk to your endo about this method but be warned that they may not be comfortable with it and therefor just dismiss it out of hand.  If I’ve learned anything, it’s that doctors don’t like to appear not to know, so do what you think is best after gathering as much information as you can.  

I do want to add for clarity that if you gave a bolus that ends up being too large and an hour later you are very low, shutting off the basal rate isn’t going to make a dent in your precipitous drop.  This method is to be used in a few very specific situations. Please be careful and test, test, test.

If you missed it, my day one addition, “A day in the life... with diabetes” to Blog Week is here.

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The following are archived comments from this post. You can post new comments below.

 

Andrea S.

Great post! I think the pump is geat for kiddos. Oh yeah and I'm subscribing to your posts.

Tuesday, May 11, 2010 - 02:32 PM

Scott

Practiced what I preach early this morning. Arden's #BGnow was 64 at 6:30 am, shut her basal off for an hour and she woke up at 95.

Wednesday, May 12, 2010 - 10:41 AM

saucyredhead915

You've got it down! Good for you! Now, can you help me? :)

Wednesday, May 12, 2010 - 12:04 PM

Scott

I'd be happy to help everyone!

Thursday, May 13, 2010 - 07:55 AM

Karen

When I had my pump training, I was told not to correct a low by turning off my basal because it takes too long to work.  Which you also pointed out in your post.  But it never occurred to me that I could reduce my basal to fend off a low.  Brilliant!  I tried it just last night - before bed I was 71 with over 1 unit still active from a snack.  I didn't want to eat again because I had JUST brushed my teeth.  I know I've been staying fairly stable overnight - so I knocked my basal down to 70% for two hours.  Worked like a charm, because I didn't get a single low alarm from my CGM.  And when I woke at 4am (because the cat decided it was play time) my blood sugar was 82!!!  Thank you for the great tip!!

Friday, May 14, 2010 - 10:21 AM

Scott

Karen,

It makes me so happy that my tip worked for you - you don't know. Because I understanding what your life is like (on the level that I do), your comments literally made my eyes fill up with tears.  This comment alone made your Blog Week project worthwhile for me.

blog week - http://bittersweet-karen.blogspot.com/

Best,

Sunday, May 16, 2010 - 08:51 AM

Sarah Kelly

I also think that this must work more quickly for children.  I've utilized my two-year olds sons pump temporary basal setting to keep his BG stable or to come up over night quite often, mostly because he HATES to be asked to eat or drink anything once asleep (who could blame him).  I have however had a difficult time utilizing it for exercise as it seems that the effects of it being shut off are longer lasting than I'd like and often lead to more drastic highs later.  
But for us it's definitely the best way to treat nightime lows.

Sunday, May 23, 2010 - 06:38 PM