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Arden's Day Blog

Arden's Day is a type I diabetes care giver blog written by author Scott Benner. Scott has been a stay-at-home dad since 2000, he is the author of the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal'. Arden's Day is an honest and transparent look at life with diabetes - since 2007.

type I diabetes, parent of type I child, diabetes Blog, OmniPod, DexCom, insulin pump, CGM, continuous glucose monitor, Arden, Arden's Day, Scott Benner, JDRF, diabetes, juvenile diabetes, daddy blog, blog, stay at home parent, DOC, twitter, Facebook, @ardensday, 504 plan, Life Is Short, Laundry Is Eternal, Dexcom SHARE, 生命是短暂的,洗衣是永恒的, Shēngmìng shì duǎnzàn de, xǐyī shì yǒnghéng de

Filtering by Category: DexCom Blog

OmniPod, DexCom... you impress me

Scott Benner

 

Tonight is the sixth night of our island vacation and I wanted to take a second to report in. So far during our trip Arden has been on an airplane, outside in the rain, lived in 90º heat and spent countless, often consecutive hours in the ocean. 

I am here to report that Arden's diabetes tech has not skipped a beat... I can't tell you just how invaluable these tools are in difficult situations like these. Between odd sleep times, varied and strangely timed meals and all of the activity, there is enough going on to mess with even the most Zen diabetes guru. I am not ashamed to tell you that I'd be just a little lost without our gear. 

I'll leave you with a picture of Arden in a mango tree.

I hope everyone is having a great week! 

Number Thirty Seven

Scott Benner

Have you ever heard that if you ask a person to name a number between one and one-hundred, the most common answer that people give is thirty-seven?

I don't know if that's something that can be proven mathematically but I have noticed it a lot over the years, that number just pops up all of the time.

 

Arden's All-Star softball team competed in their All-Star tournament last week. They played their first game on Thursday night and lost. Friday was rained out so they were scheduled to play two games on Saturday but they couldn't lose again or they would be out of the tournament - you can only lose two.

Thursday's game required a large bolus to battle Arden's adrenaline and the same was needed for the first game on Saturday. They won that first game Saturday and after a thirty minute break to recharge, they played again. During that second game her BG held steady until about the fourth inning. Arden's DexCom CGM was hung on the fence of the dugout during the games and I would check it every inning or so depending on how her BGs were acting. Arden ran out on the field when the forth inning began, as she did I walked into the dugout and looked at her CGM. Her BG was 120 with two arrows pointed down, she was falling fast but I knew that a juice box would handle it. I was actually waiting for this fall. Arden ran in to the dugout, drank a juice box in about ten seconds and ran right back to third base. Her BG balanced out as I expected and the girls won the game about an hour later. When Saturday ended, the team was 1 and 2, and scheduled to play again the next day at 1pm.

Arden's BGs were on the low side overnight, as I expected they may be and I handled them with a little juice and some temp basals. Nothing out of the ordinary after a day of activity.

Sunday brought high temperatures and a clear sunny sky, it was very hot. The girls warmed up at twelve-thirty, the game began at one and the adrenaline hit her about 45 minutes later. I bolused when her BG began to climb but I was too late, Arden's BG was on the move. I tried desperately to get it to come back down without going to low. Arden has trouble running when her BG gets above about 200 - she is normally very fast but above 200, her speed and dexterity become average, so my goal is always to keep her under that number when she plays. They won the first game and the next game was going to start in a half an hour. Arden's BG wasn't moving but I still only gave her a slight bolus (.20) for all of the food that she ate after game one. I thought that the .20 was a conservative approach to her game break snack as I was still leary of a fall from the earlier adrenaline bolus. 

We were now into the second game and my plan was to check her CGM after the third inning. The last time I looked at it was before the second inning began, it read 192 with an arrow diagonal down. Before I could get up after Arden made the last out of the third inning, she ran through the gate toward me holding her hands over her head and gesturing for me to come to her...

"I feel really dizzy!"

I didn't bother to test before I handed her a juice. She sucked it down as I tested her free hand...she was 37.

I said to Kelly, "Give her another one" as I ran to get the CGM from the fence. Arden's BG was dropping so fast that the CGM hadn't caught up yet, it read 101 but now both of it's arrows were pointed down. Arden's BG was falling way too fast, she drank two juices, ate a fast acting tablet and was now chewing on a handful of Mike and Ike's. I tested again, BG was 49 and she was still very dizzy.

Arden and I went into the dugout to get out of the sun, she alternated between sipping cool water and fuetly holding her head to try and stop the dizziness - seeing her press her hands into the side of her head broke my heart. I hugged her as she laid into me, I quietly told her that it would stop soon. We tested again, 69 but the arrows on the CGM were still pointed straight down. I decided to follow what the meter was indicating, I believed that her BG was climbing and stoped considering more carbs. It was then that Arden's place in the lineup came up... it was her turn to hit. "They can skip you for one inning", I told her.

"I can hit", Arden stood up squeezed her head between her hands one last time and put her helmet on, we tested again and her BG was 131 but she was still feeling the low. What came next was Arden's only strikeout of the tournament. She fouled off two pitches, running them both out before swinging and missing the last pitch of her at bat. I sat in the dugout staring at her, I was sure that I shouldn't have let her hit but I just couldn't find the parental wisdom in telling her that diabetes was going to make her miss that at bat. Secretly, I was so happy that she didn't get on base because I didn't want her to run but you can't imagine how proud I was of her for trying. She sat out the next half inning, opting to lay on the bench with her head on my lap so she could try to get her bearings. She only said two things to me during that time... "It's getting better" and " I can't believe two balls went to my position". She was annoyed that she missed the opportunity to make two plays.

When her team made the last out, she sat up, looked at me and said, "I'm okay, go back with mom".

Arden and her team went on to win that game and then they won the next one too. They never lost after losing the first game on Thursday and they won three in a row on that hot Sunday afternoon. I'm still not positive that I should have let her hit but, well, check this out...

 

That's Arden holding her trophy. Her team won the 2013 eight year old All-Star tournament last weekend! She played all but three outs in the field and never missed an at bat. Arden beat all comers, including diabetes - I think that if I was any prouder of her... my heart would burst.

Holy @#%&*$% A1C

Scott Benner

Seven years in dog years is what, 49? Well in A1C years, it's 28. Arden has had twenty-eight A1c tests since she was diagnosed and most of them didn't go too well. As I've shared in the past, Arden's A1c began it's journey above nine and drifted lower over the years as I learned how to better manage diabetes. It wasn't until recently that we've made real strides in decreasing that elusive number.

Read More

Super Bolus, I Fear You No More

Scott Benner

I just couldn't take it anymore. I'd count the carbs perfectly, pre-bolus at exactly the right time and still there are certain foods that require another bolus an hour later. On the surface you would think that I wasn't administering enough insulin but that couldn't be because every once and a while the bolus would work - but not usually.

 

Example: Movie theater

Arden is a nacho and popcorn lover at a movie, and we see our fair share of movies. Most times, I measure, count carbs and bolus only to watch her DexCom G4 point it's arrows to the sky before the second act is over. Then I spend the rest of the afternoon dropping random measurements of insulin on the number in an effort to get things back to a desired level without going too low. Sounds like a bad Price Is Right game, doesn't it?

Then it just hit me a few weeks ago, we have a CGM, why am I erring on the side of caution and chasing highs when I could be living on the edge of glory with Arden's DexCom G4. Suddenly, I felt stupid. All of this time I was playing scared when I know that's how you get hurt. Time to put my head down and run through a few wood be tacklers. (Sorry, my metaphors are all over the place today)

So I looked at that food on Arden's lap, counted carbs and then added every drop of extra insulin that I ended up given her at the last movie. My new thought, "What's the worst that could happen... she starts to get low, the DexCom catches it and we throw back a fast juice box and catch the fall".

That's exactly what happened

We watched Star Trek, Arden munched on her snacks and about an hour into the movie Arden's DexCom line had never wavered, her BG was 118 and steady. This was either going to be the perfect amount of insulin or too much. About fifteen minutes later, "Beep, Beep, Beep", 92 one arrow straight down. No big deal I thought - then I leaned over and said, "Here Arden, drink this juice". Twenty minutes later the CGM line was steady at 88, Arden was able to graze her remaining popcorn without worrying about bolusing and her BG never fluctuated, even hours after the movie had ended.

All of these fancy diabetes gadgets and I was using them to chase numbers instead of staving them off. I know that this sounds scary to many of you and I know that it takes time to find your comfort level, but please believe that on the day that you gain that level of comfort... this is all going to seem so much easier. Sadly, you can't rush that day to come, but it's so worth getting to and it makes me incredibly happy to know that you will all be there one day with me - kicking type I diabetes in it's annoying ass.

Arden's Hands are Growing

Scott Benner

Yesterday morning I entered Arden's room about an hour before her alarm was scheduled to sound. Her DexCom G4 was asking to be calibrated and so I put a test strip into the OmniPod PDM, turned the MultiClix to a new lance and took my daughter's hand in mine.

As I was choosing a finger to strike a hole into, I noticed that her hand felt heavier then it did the last time that I held it to test. I was certain that it hadn't grown bigger since the day before, but yet it felt unmistakably heavier. I sat on her bedside as the machine did it's job and found myself feeling lucky that I have these moments with my sleeping girl. Not too many people get to do this I thought. I get to hold Arden's hand almost every evening after she has fallen to sleep and those moments give me a different perspective on her growth and allow me precious time to gaze at her growing face.

So if you are in need of a silver lining today, maybe this thought could be one for you. We get to hold our kid's hands while they sleep.