#1193 Two Wheelin'

May 9, 2024Scott Benner

Brandy and Lisa are a delightful mother daughter pair.

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Scott Benner 0:00
Hello friends and welcome to episode 1193 of the Juicebox Podcast.

Today I'm joined by Brandy. She's 40 years old, she's had type one diabetes since she was a sophomore in college. And brandy brought a little bit of a surprise with her. You'll find out about that in just a minute. Nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. Don't forget to save 40% off of your entire order at cozy earth.com All you have to do is use the offer code juice box at checkout that's juice box at checkout to save 40% at cozy earth.com. When you place your first order for ag one with my link, you'll get five free travel packs and a free year supply of vitamin D drink ag one.com/juice box you know I'm talking to you right now into your ears and I'm saying to you go to T one D exchange.org/juice box and complete the survey. They're looking for type ones and the caregivers of type ones who are US residents to complete a short survey. That's all they ask. He will in the exchange.org/juice box you will help type one diabetes research move forward and you may just help yourself. This episode of The Juicebox Podcast is sponsored by touched by type one touched by type one.org and find them on Facebook and Instagram touched by type one is an organization dedicated to helping people living with type one diabetes. The free tickets for their annual conference just became available today. Go to touch by type one.org then click on programs and then annual conference and register for free. I will see you on September 14 in Orlando, Florida. This episode of The Juicebox Podcast is sponsored by the ever since CGM. And sure all CGM systems use Transcutaneous sensors that are inserted into the skin and lasts seven to 14 days. But the Eversense sensor is inserted completely under the skin lasting six months ever since cgm.com/juice box. This episode of The Juicebox Podcast is sponsored by the Omni pod five, Omni pod.com/juice box. My daughter Arden has been wearing an omni pod every day since 2006. And it has been a constant friend in her life with diabetes, consistent tubeless and worryfree Omni pod.com/juice box IO

Brandy 2:52
My name is Brandy. I am a type one diabetic. This is my 20th year dealing with this lovely, lovely disease. And I just wanted to come on here and tell a little bit about my story.

Scott Benner 3:06
Randy, how old were you when you were diagnosed?

Brandy 3:08
I was 20.

Scott Benner 3:10
So you're 40 now? Oh, you're at that interesting split time. You've now had diabetes for as long as you didn't have it.

Brandy 3:17
Yes, exactly. Which is a little surreal,

Scott Benner 3:21
I would imagine. And we are actually joined today by your mother Lisa.

Speaker 1 3:27
Yes. Hi, this is Lisa. I'm brandies mom and honored to be on this podcast with brandy to again, share our story in hopes that perhaps something we might say or that we've been through would be of help to others.

Scott Benner 3:45
That's wonderful. That is exactly why I started making my my blog all those years ago. Please. I won't ask you how old you are. I assume you're also 40. So

Unknown Speaker 3:54
older than dirt.

Brandy 3:57
Oh, there you go twin, but

Scott Benner 3:58
yeah, right. I just I just assume that's how it went. So I guess I'd like to start by asking, yeah, I think this is what I want to do. Brady, what do you remember about being diagnosed? Well, it's

Brandy 4:10
I mean, it's very, most things are very vivid. There's a few things I think now like looking back on it. It's a little hazy. But I remember I was in college. So it was my second year in college. I was about two and a half hours away from home. Well, I have family close to the area that is extended family. And I remember just not feeling the best kind of rundown, tired. I was thirsty all the time. And the college that I went to is a very, very, very tiny college like, I could call my professor on the phone and not identify myself and he recognized my voice. So we didn't have like a medical clinic. It was only a couple of days a week. I knew I needed to be seen. So I kind of do just went and saw the nurse one day and was like, Hey, I don't think I think something's wrong. And she was like, Okay, well go get you a big breakfast. She's like, the doctor will be in at nine. And I was like, Well, I had to teach a class that morning as well. So I went and got breakfast, taught the class, I let everybody go early, and then went back. And I was the first one to be seen by the doctor. And I just remember, I told her kind of what was going on about how I lost 15 pounds in one week, thirsty all the time getting sick on my stomach. She said, Here, go pee in a cup, came back and she's like, Hey, sweetie, I don't know how to tell you this, but you have diabetes. And I'm like, No, you you can't tell that I just peed in a cup. That was a she's like, who can you call? I'm calling an ambulance. We're gonna we're gonna take you to the hospital. And so you know, it kind of started from there. And I still at that moment, like it hadn't registered. And so like I called my mom who was at work. And I started to tell her and I was like, Mom, I have diabetes. And like, I just started sobbing. And the doctor just took the phone out of my hand and then talk to my mom. So

Scott Benner 6:14
hey, what was your last? What was your last meal? Do you remember? Wait, was it Hardys? Did you say

Brandy 6:21
already breakfast? I went into like, go to a very small school. We have one cafeteria and we had one fast food restaurant and it was hearty. So I got like a sausage biscuit. You

Scott Benner 6:32
got cut rate fast food? Yes. You didn't even like go to one of the big ones.

Brandy 6:39
We don't have. We didn't have big ones that literally Hardee's is the only fast food restaurant in town. Okay,

Scott Benner 6:44
when you get on the phone with your mom all those years ago, like, Were you being brave, right up until that moment?

Brandy 6:51
I don't think I was being brave. Up until that moment. I think I just I didn't understand what was going on. in shock.

Scott Benner 6:57
Yeah, Lisa, what did it feel like when she? Do you remember that phone call? Every day all over my private Facebook group? I see people talking about their love for Omni pod five. Have you seen people out in the community talking about Omni pod five and thought, Oh, I wish I could have that experience with an insulin pump too. Well, guess what? If you've answered yes to that question, you may be experiencing FOMO fear of missing out on Omni pod. Symptoms of flu may include but are not limited to fantasizing about jumping into a swimming pool without disconnecting from your pump first, dreaming about walking past doorknobs without getting your tubing caught? Oh, I bet you've been wishing you could wear your outfits that don't have pockets? Well, there's good news for you. You don't have to suffer from flu any longer. You can see what you're missing by just trying the on the pod five for yourself. Visit my link Omni pod.com/juicebox To learn more, and get started today. Let's get rid of that fear of missing out on Omni pod and get you going on life.

Speaker 1 8:05
Oh, I'll never forget. I'm sitting here at work and, you know, hear answer. And then I can hear immediately in her voice that, you know, she's on the verge of tears. And then the doctor gets on the phone and introduces herself. And you know, this is a small town college with an infirmary and she says, you know, don't panic that you need to come up here immediately have called an ambulance for your daughter. She has type one diabetes, her blood sugar's were, you know, through the roof. And my initial thought is, well, you know, lady, I'm not sure who you are, you're in a little small town, college infirmary. And, you know, diabetes, which I was totally ignorant of no one in our family has diabetes, even type two, I see them thinking, you know, there's got to be all sorts of tests that have to be run, which you're obviously not capable of doing. So I was in shock and denial, both but you know, knew that I had to get there as soon as possible and just found out a hospital they were sending her to and drove like a bat to meet her there. You know, just couldn't get there fast enough. And that that day is just scorched into my memory. And I'm, I'm hoping that over the last 20 years, there have been changes in improvements and with with teaching and all the information and instructions that can be given but years

Scott Benner 9:44
ago, Lisa there hasn't been don't worry

Speaker 1 9:48
about that. That's that's my biggest beef of the staff and they are the endocrinologist. They were all fabulous but the lack of education In and really enlightenment, to this life changing disease that you've now got that can kill you if it's not treated properly, that can't be stressed enough. And we did not get that we got a pink panther coloring book literally never even happened that riding on it that we went through pretty much on our own. And that was just an innate even after the initial week in the hospital. You know, it wasn't near what we needed and and we were fumbling you know, in the dark trying to figure this out. And then, you know, I have to come back home and leave my daughter two and a half hours away to fend for herself. And we still didn't understand the enormity of this at that time.

Scott Benner 10:54
No, I guess you also you know, Brandi, do you have kids now?

Brandy 10:59
I do not know.

Scott Benner 11:00
So your mom and I know something that that other parents know. And people who don't have kids know is that every time your kids text or call or anything, there's this your your heart, like takes half a beat. And you're like, like you just you're waiting for somebody to say something bad. And I think that people could think oh, that's you being I don't know, like dramatic. Or you know, you don't need to be that way, Scott. But I swear to you, every time I get calls, I think I hope they're okay. And then when they're okay, then you think oh, I hope they're happy. And then when you think that, you know, then you're like I hope people are being kind to them. Like the things you worry about constantly for your children are are insane. So when the call comes, and you're like, Oh, I hope this is okay. And then it's no, this is happening. Your mom, I like your mom going like I don't know who you are, you might not know what you're talking about. But at the same time, I'm incredibly impressed at how well that clinic diagnosed you.

Brandy 11:57
Oh, me too. I was I was shocked. You know, and again, I had no idea. Well, I am also very, extremely stubborn. I'm sure it has nothing to do with being an only child. But she told me EMS was coming. And I was like, No, I can have a friend dragged me to the hospital. And she's like, I don't think you understand how sick you are. And I'm like, I am walking and I'm talking and I came to you. And so she was like, they're gonna come in and take you out on a stretcher. And I'm like, I am a sophomore in college, and you want to put me on a stretcher in front of everyone. No, we're not doing this. And so we negotiated for a few minutes. And finally it was I was able to walk out on my own with one EMS person in front of me and one behind me and get into the ambulance. But you know, the load the closest hospital is about 35 minutes away. So I had that fun ride.

Scott Benner 12:53
Did you guys stop at the Hardy so the EMS guys could get some lunch? Yeah, I

Brandy 12:57
mean, I should have asked them if they wanted something

Scott Benner 13:01
that you know, 15 pounds in a week. Yeah, so

Brandy 13:05
and I know it specifically because I, the guy I was dating at the time, we had gone for some reason. We've gone to his family's house twice, like back to back weekends, which were normally alternated. But I weighed on his mom's scale. And when I weighed the Sunday before I was at one way and the next Sunday, I lost 15 pounds. And on the way back driving back to campus, my vision just completely almost went I've worn glasses and contacts since I was in seventh grade. At this point in time, I took my contacts out and I could see just fine. So it was almost like, I got a little excited at first I was like oh my gosh, my vision just automatically correct.

Scott Benner 13:50
turning into a sexy spider that can see well.

Brandy 13:58
And then, you know they burst my bubble in the hospital. They're like, Oh, no, no, it'll it'll correct itself back and I was like, was

Scott Benner 14:05
15 pounds a big percentage of your body weight?

Speaker 1 14:09
At the time? Yes. Yeah. And she had told me that she was not feeling well and that she was tired. And I'm thinking out, okay, you know, most college kids are tired. I knew her schedule, her workload teaching classes as well, being an RA just always overachieving. But when she told me about the weight loss, again, I had no light bulb that went off because I knew nothing of diabetes. But that was enough of a concern that made her promise she would go to the infirmary the next morning, which which she did know, but never expecting the diagnosis

Scott Benner 14:47
or rapid weight loss makes me think cancer right away. Bleeding and rapid weight loss, put my head to cancer. And so yeah, and yeah, hey, you know, you kept saying you don't know anything about diabetes. Is there any They're auto immune in your family like, Lisa like celiac, or do you have a bipolar uncle or anything going on at all?

Speaker 1 15:08
Yes and no in that, again, no other diabetes, as far as the auto immune Hindsight is wonderful. When Brandi was younger, in the I believe it was this seventh or eighth grade brandy, when you started having when the passing out, and they diagnosed you with that was one of the two. I

Brandy 15:31
think it was eighth grade.

Unknown Speaker 15:33
I think it was eighth grade, it

Scott Benner 15:34
was the diagnosis.

Brandy 15:37
That vasovagal syncope. They

Scott Benner 15:39
don't know why they didn't call it they didn't they didn't talk about pots back then. Has anybody said that to you since then, or has that gone away? No,

Brandy 15:47
no, and it's gone away? And they said I might outgrow it. But no, I mean it. You know, we didn't have the that wasn't pots wasn't a thing back

Scott Benner 15:57
then nobody would have talked about that. How about like thyroid stuff? Lisa? Anybody with a thyroid? No,

Speaker 1 16:02
no, no. I have a nephew who had thyroid cancer a couple of like hypothyroidism or or something. Yeah. No, but but the auto immune issue with vasovagal syncope, you know, that was often wonder, could that have been some sort of initial something? Because it was vase, you know, the auto immune with her that it kind of changed her life for a year? A good year? Yeah.

Unknown Speaker 16:32
I don't know

Speaker 1 16:33
went away. But she's, you know, again, with the the diabetes, the doctors, or the endocrinologist actually said that they thought she had meningitis right before the onset of this and they thought that that could have been a trigger for the onset and just, you know, her pancreas dying. Yeah,

Scott Benner 16:57
I mean, it to be perfectly honest, like, that would be the first time anyone's ever brought that up to me as as connection. But I think that what can happen often is that when this stuff happens, and you can't point to a reason why think we keep looking for a reason why. And then you start saying like stuff like, Oh, she passed out when she was eight, like, you know what I mean? Like, who knows, right? Like, it sucks. But we said, Were you sick before that? Did you have any kind of a virus and illness? I? Well, I mean, I'm sorry, I misspoke, Brandi.

Brandy 17:29
I got diagnosed in February, in July, before I had meningitis. I had my cousin had meningitis. And of course, passed it to me, because I guess we just like to do things as a family. And so I had meningitis, and was very, very sick with that. And then I you know, looking back on things, there were a few signs, I think that my pancreas was starting to kind of go kaput, because I remember going out to eat with my dad in January. And like we went to a Japanese steakhouse, and we ate and I immediately got sick and had to run to the bathroom at the restaurant and throw up. And that happened to other times, with meals with certain meals. Were kind of in that january MONTH, where I would eat something and immediately get

Scott Benner 18:20
Lisa Lisa meningitis is a viral infection. And if I had $50 to bet with you, I'd bet that that's what happened. So Exactly, yeah.

Speaker 1 18:29
That's what the doctor was leaning towards me a trick or, but, you know, once we got the diagnosis and knew that this was for real, you know, we've been just trying to educate ourselves since on, on how to how do you live with it? How do you how do you control it? And we've come so far, and I'm so grateful. You mentioned earlier about, you know, when something's wrong with your child, you're just you inhale and you don't breathe and you wait to exhale to know everything's okay. And brandy having the continuous glucose monitor. And the dex comm app where we can, she can share with me to where I don't have to bug her 50 times a day to see what her blood sugar's are that was a life changing thing for us in that I can look at it and know that she's okay. Or if it's low, I can just send her and we have a we have an unspoken rule when it gets low. I don't even have to text her. She sends me a text and says a meeting you know,

Scott Benner 19:34
so you don't feel like you're bugging her all the time. And she doesn't feel like you're watching her. Yeah. Hey, yes, yeah, Brandi. How long have you had a CGM? today's podcast is sponsored by the ever since CGM. Boasting a six month sensor. The ever sent CGM offers you these key advantages distinct on body vibe alerts when higher low, a consistent and exceptional accuracy over a six month period. And you only need two sensors per year. No longer will you have to carry your CGM supplies with you. You won't have to be concerned about your adhesive not lasting, accidentally knocking off a sensor or wasting a sensor when you have to replace your transmitter. That's right. There's no more weekly or bi weekly hassles of sensor changes. Not the ever sent CGM. It's implantable and it's accurate ever since cgm.com/juicebox. The ever since CGM is the first and only long term CGM ever since sits comfortably right under the skin and your upper arm and it lasts way longer than any other CGM sensor. Never again will you have to worry about your sensor falling off before the end of its life. So if you want an incredibly accurate CGM that can't get knocked off and won't fall off. You're looking for the ever since CGM. Ever since cgm.com/juicebox.

Brandy 20:59
So often on I, my first one I got when I went back to school, I went back to school and got a second master's degree. And when I was there, I did an internship in an endocrinology office, a pediatric endocrinology office and the Dexcom rep there hooked me up because I had zero insurance. And I had never had a CGM before and that was a My first one was

Scott Benner 21:30
the four you had the g4.

Brandy 21:32
Oh, no, no, no, no, no, I'm sorry. It was good. G five, five.

Scott Benner 21:36
And Lisa, did you Did you hear her humble brag that she has two master's degrees?

Unknown Speaker 21:41
I'm glad she did you hear?

Scott Benner 21:43
Did you hear her slip that in? She's like, Yeah,

Unknown Speaker 21:46
I'm glad. Glad.

Scott Benner 21:48
So So you've had one for? I mean, a while now six years?

Brandy 21:53
Yeah, about six years. Yeah, I'm at now. I did take a year long break. But no, I I've had one for about six years now. And it honestly is really helped. Because, you know, my mom would irritate the crap out of me like, asking how are you doing? How's your blood sugar's? How are you feeling? You know? And then it would kind of sometimes if that would tell her what the number is, you know, then she'd be like, Well, why is it that like, did you do this? Did you do that? And I'm just like, You know what, I have been doing this on my own for how many years? I'm good. I got it. And so now her being able to follow, and then we have that little unspoken. If it's high, or if it's low, don't ask me about it. I'll tell you that, um, I can be a mean person when it's out of range.

Scott Benner 22:42
Lisa, I'll tell you how interested I am in this that you're 20 years into this, she's 40 years old, you worry about her every day.

Speaker 1 22:52
Every day it your children are always your children. Doesn't matter the age, that will never change, you know, so she can be 60. And I'll still worry about her health and her happiness and her well being Yes. Ready?

Scott Benner 23:10
Can I ask you how it makes you feel to hear that?

Brandy 23:14
Oh, already? I mean, I already know that my mom and I have a very, very, very close relationship.

Scott Benner 23:19
Are you yelling at this poor lady than when she's checking on you what's going on?

Brandy 23:24
Because as I have posted on the podcast on the Facebook group, when we have high blood sugars, and we have low blood sugars, I am already I'm I'm a perfectionist already a little bit. And so I'm already irritated. I'm already upset at myself because I'm low or high frustrated, because something is I did something wrong or whatever. So I don't want anybody else like pointing out that flaw.

Scott Benner 23:50
I have an episode with Jenny called altered minds that goes over how people's brains change when their blood sugars are high and low and how that comes across. But Lisa, you know that right? Like, you know, she's altered when she's higher. She's low.

Speaker 1 24:06
Yes, absolutely. But it still doesn't, you know, change the fact that you're going to check on them? No,

Scott Benner 24:12
of course, but does it? Does it make you I can explain it for me. So you've been a mom of a person with type one for 20 years. I've been the father of somebody with type one for 718 17 years. So you and I are pretty much like we're in the same game pretty much. And it took me a while to let art and be upset and me just sit there and just breathe through it. Like when her blood sugar is high. And I'm like, Hey, you got to do something at first. It's like, Hey, I'm trying to help you. And then you realize like, this is not the response I would get from her for blood sugar wasn't high. It's not her fault. Her blood sugar's high, but it's hard right to like to just sit there like a punching bag and take it

Speaker 1 24:56
totally, totally it is. But and that's one reason why I think our unspoken rule works is because she knows that I know when it's low or when it's real high. So thankfully, she is considerate enough, even in her irritation, that it's going crazy for whatever reason, which often there is no reason, you know, it's a Wednesday at four, and it decided to drop to 35, she will send me that just a text I'm eating, you know, if it's 3am, I'm eating, you know, because the lows really are the scary horse. So that that and me having, again, the Dexcom app to where I can see and I get an alert, and I can see your trends. All of that has, has eased that to where I'm not having to constantly bug her about it, and may be an irritation on top of her trying to deal with this mess that she was given. But it also, you know, by her knowing that I can see that, she just sends me a text, and I trust that she is taking care of it. And that's one thing that I've been very fortunate is that Brandy is she could be a poster child for type one diabetes. She's one of these type of people she is a little on the perfectionist side, she has educated herself she has gone above and beyond, you know what the ADA says and all of this trying to really understand and help her sail to where the fact that I know that I know that she is extremely responsible, and is going to to address any situation that comes up. And in a few conversations I've had with other folks, parents as well. You know, especially if it's a young child who doesn't know who can't, you know, they really can't be responsible for themselves so to speak. It's very difficult. You know, when some some kids don't take care of themselves like they should, they don't, you know, give themselves their insulin when they should or just just different scenarios. That would make me crazy if I was in that. So I count myself lucky that you know, Brandi is as responsible as she is in that we do have the pump, that we have that CGM in the app to where we can share information without being you know, irritants to each other. And just making a situation worse, because stress alone, you know, wreaks havoc.

Scott Benner 27:47
I want to say to Brandi I mean I agree with your mom, but at the same time, I'm impressed that you're doing this even as an adult, like just having the the courtesy if nothing else to say, I know you're worried about me, I'm handling it. Like it's a it's a big deal, because my daughter's 19. And there are still times where I'm like, Hey, are you aware of this? She's like, I know I'm handling it. And I'm like, I know, just please LIKE if you just let me know that or even just like put a checkmark or a thumbs up or something on something. So I know you're like, like moving into anemia, like it's, uh, it's, it's scary, you know?

Speaker 1 28:25
Exactly. Well, Scott, I will say this, I did want to touch on this while we were talking because to me outside of the diagnosis, it's the second biggest thing that Brandi and I went through, and I think perhaps having experienced that is one reason why she is as considerate as she is, even though I mean she was before. But, you know, again, Brandy has done everything perfectly. I'm not just bragging on her because she's my child. She's just done all this additional research and, you know, she keeps her blood sugar's in tighter range. In fact, brandies a one c this past checkup was what Brandi?

Brandy 29:11
I found like, six. So my, my, my goal is to do it.

Scott Benner 29:18
That's amazing. Also, I love how your mom just set you up to that like you were 12 years old and you were at like a dinner party. She's like, go ahead honey, tell us about your dance award. Do it tell him no

Speaker 1 29:30
I didn't want to misspeak the number but I mean for for Title markable. So I just I just say that to to kind of confirm, you know what I'm saying as far as how tight she tries to keep her blood sugars and all. So with that preface, Brandy got sick and I don't even think I have purged it from my memory the year how many years ago it was it seems like it was about

Brandy 29:58
it was January 2012. Okay,

Speaker 1 30:00
that sounds we were 10 years into the diabetes and thought we were knew what we were doing and in doing everything, right, and brandy got sick. She knew the Sick Day protocols.

Brandy 30:19
Actually, actually, actually, I pulled out the paint, paint their book to double check. couldn't remember because I found the book. And I have had this update protocols pulled out to make sure are doing everything right. But go ahead.

Speaker 1 30:39
I even took her she was living in an apartment here in town. I went and picked her up and took her to we went to an urgent care because by the time I got her, everything was closed and her endocrinologist was still up in. She loves him so that two and a half hours away, she was still going to see him, you know, for her checkups every few months. So I take her to urgent care. All right. So doctors see her we tell them she's type one diabetic, she tells him what she had been doing. They gave her fluids to do all this stuff. So I'm exhaling now because medical professionals are taking care of my sick daughter. We're okay. And she wants to go back home. And this little voice, you know, in the back of your head says no. And so I'm like, No, I picked you up and you're coming home with me. And she's a grown woman with her. house. Yes. So, but I took her home. And by the grace of God, she's with us today because I did. And unbeknownst to us, you know, and I'm checking on her. She's running a high fever scale, no light bulbs going off, because well, the doctor just saw her so I know she's gonna be okay. And around midnight, when I went in to check on her. The she somehow from the depths of her soul was able to whisper rocks got right in my face. And she grabbed my arm and she said, Please help me. And her face was right in front of mine in the fruitiness of her breath about knock me down. And somehow in that little thimble of training, we had that, that triggered me to say, Oh, my God, and threw her in the car and two wheeled into the emergency room. And she was in full blown DKA. And, you know, it looked like some scene out of off of an emergency room TV show with, you know, I'm standing in the corner trying not to freak out or scream, I think I probably even have my hand over my mouth. And there's nurses and two doctors in there. And they're working from both sides and trying to get IVs. And I remember the doctor turning around and giving me this death stare saying How long has she been in DKA? And it couldn't even register with me. I'm like, what what? You know, and he later apologized for that. But, you know, she was in ICU for three days and fortunately recovered from that. From that time on. We are very sensitive to

Scott Benner 33:31
illnesses being sick. You got yourself a nice nursing home. Like setup. She can't she can't bail on you now. Right? This girl's yours. You're stuck. You're stuck. Also, I don't know, Brandy, if you realize that your mom named the episode. Oh, and what is I mean, for certain we're calling it to wield it.

Brandy 33:51
I think that's accurate, because at this point, she has to wield it twice.

Scott Benner 33:57
to have you here, I just love it. I'm going with that. He's gonna have to say something pretty amazing to get me off of that. So

Speaker 1 34:05
I just I want to emphasize you know, if there's any advocacy to be done, it is that initial education and you know, someone needs to be standing over you making you memorize the signs and symptoms of DKA and sick day rules because you can't it you can't emphasize the importance and the severity of of that and that wasn't done with us. Again, you know, referring back to the Pink Panther coloring book, that's what we

Scott Benner 34:41
magazine didn't help you. But listen, that is honestly the distribution of of information back then, like what did they have? They're gonna put it in a book. Like I always laugh when people say not laugh, but people say to me, sometimes you should write a book about this. And I'm like, you don't think this is a much easier way of getting this information out? out here recording your voice and making it all available for everyone that owns a cell phone. Like I think that's better than putting it in a book and hoping someone finds it buys it and actually reads it. You know, Britney, I want to get back in a second. I have one more question for your mom first. Lisa, Lisa, what got you into her room at midnight.

Speaker 1 35:19
Just checking on her every hour to just to check and make sure that she was you know, was okay, because her fever was so high. And I was hoping that the you know, medicine would break it and I was wanting to make sure she wasn't getting sick on her stomach. You know, that sort of thing. And I had just gone in to make sure that she was alright and then realize that that she was not and you know, would would the light bulb have gone off? Had she not been able to

Scott Benner 35:48
move? She's that she dies? She dies overnight if she doesn't get to that and if you don't if you don't go in there. Oh my god, Brenda, you can't there's no home even you're gonna have to let her move in with you. This well.

Brandy 35:58
It's funny that you say that. I just moved to a new place two weeks ago. So we we got 21 acres. So there's we've already said there's plenty of room for

Scott Benner 36:10
her kids because you're busy being like making money is that what's going on? Like I don't have time for kids? I'm I'm piling up wealth and property. Thank you.

Brandy 36:23
Well, we want to start a homestead. So yeah, we're gonna have lots and lots of little furry animals around here get to

Speaker 1 36:31
that's wonderful. And a tiny house for mom overwhelmed back north for the in the colon.

Scott Benner 36:36
I was gonna say yeah, she she earned it. Honestly, Lisa, you shouldn't you're not working. Are you?

Speaker 1 36:42
Yeah, I'm at my place of employment. Now with the Do Not Disturb sign. Oh, my God,

Scott Benner 36:47
this is shameful. That lady saved your life. 10 years.

Brandy 36:52
I know. I know. Well, it's funny. She actually though. I started. I was apparently talking gibberish. Also for a while that mom, she thought I was completely crazy and talking out of my head. And I remember saying, talking about some. I think I was watching like a gangland episode or something on True Crime TV or something like that. And I was telling her about it. And she was like, none of what you said made any sense. Yeah, none of it. I have no idea where you're going with that. And I was like,

Scott Benner 37:23
by the way, just so you know how my brain works. Had you said speaking tongues you would have gotten the new episode title. But you said speaking, B said talking gibberish. So I'm sticking with my first thought. So So brandy, listen, I want to know about I know it feels like we're moving forward and moving backwards. But just think of this as Pulp Fiction. We're just jumping into the future. And then all of a sudden, John Travolta is alive again. Perfect. I want to know about that first week in college, trying to figure out how to take care of yourself by yourself with what I assume is needles, insulin and a meter.

Brandy 37:57
Yes, right. So I first app I will say, I was very ignorant. And I didn't know what I didn't know. So I didn't know that I needed to be concerned or worried or scared. I just I followed the instructions. Now I will say first of all, my endocrinologist that I had was the most amazing, kind hearted man ever. He was a straight shooter. He was like, I'm gonna go ahead and tell you this right now. You're a type one diabetic. All the money is in type two diabetes. So I am so sorry. But just you're not going to learn a lot. And I'm like, Well, this.

Scott Benner 38:42
Thanks, but okay. 20 years old, you're still a sophomore, right? Yeah, I

Brandy 38:46
had no idea what's going on. But he's like, the first thing I want to do is get you on a pump. And I'm like, Okay, I don't even know what that means. But yeah, so that for the first three months, I was on insulin injections. I just made my lunch. Like I would pack like a sandwich and some chips. And I remember writing like the card counts on the baggies. Now, obviously, I would eat, eat, then take my insulin because there was, at least in my world, there was no never any discussion of Pre-Bolus thing or you know, anything like that. So it was eat, count the carbs then Bolus so obviously I was going up to probably, you know, 350 or something every day with meals, but that was it. Like there was never Yeah, it was very kind of rudimentary to

Scott Benner 39:33
kind of fascinating that coming from like, regular mph cloudy, like that whole time of insulin. The whole the whole idea was shoot it early so that it's working when you eat and then they got to, you know, I don't know, they moved up to human log. And they, like the entire profession forgot about that.

Brandy 39:55
Exactly, exactly.

Scott Benner 39:56
They're just like, Oh no, it's faster acting insulin now. So you don't need to that those Jenny talks I don't know if you how much of the podcast to listen to but but Jenny is so if you if I asked her right now What irritates you about diabetes in her top 10 She'd say that they call it rapid insulin, but it pisses her off. Because it gives people the idea that it works rapidly and so it'll just work real quick when you put it in. And you know, it's just it maybe it's bad branding or maybe it's just like, sometimes I think it's just the case of the doctors being so impressed with how much faster it works than what they were accustomed to coming from regular etcetera, that they're, they just forgot about that whole aspect of the timing the insulin Yeah,

Brandy 40:39
I was gonna say I, in all the doctors that I've seen over the years and that sort of thing, like it's always been referred to as your fast acting insulin. And I don't ever remember a single doctor saying, it takes 30 minutes for it to start working in your body. Like that was never even mentioned. Of course not. I had to bring it up. Actually, whenever I was like, hey, there's newer influence out now can I get on the Gosper? You know, can I get on something that's a little bit better?

Scott Benner 41:09
Do you have any idea how many people think I'm a genius for saying to Pre-Bolus I'm like, I'm not a genius. I just this is pretty freakin common sense. He right here, you know? Because, well, but it's because of the time that they spent not living like that. And then when when somebody finally says it to them, and they see the impact of just balancing, like making the timing of the insulin line up with the action of the carbs. Like they're just like, Oh, my God is amazing. And I actually no lie. I have a thank you online this morning. It's actually still in front of me. I can't believe you said this. This lady named Sandy sent me a note and said, Honestly, this podcast is more important to me than seeing my Endo, you have helped me tremendously. I was given minimal information by my doctor didn't even know to Bolus before eating after being a type one for 10 years, I was still seeing an endo, who I was seeing an endo who is a type one who now tells me that my control is better than his. And so that's the Lisa's point earlier. Least I didn't want to break your heart in the first five minutes. When you were like, you know, I hope that the education is better now. But I'm currently recording a series of episodes, that will come out in 2024. And I'm calling them whistleblower. And they are healthcare professionals whose voices are going to be altered so they can talk about their jobs openly. And each conversation is more depressing than the next one. Just so you know.

Speaker 1 42:38
I could I could lend comments to that series well, with other things I've been through myself, where there's just no education, even in the medical profession that they should know better. If this is your job, it's your responsibility to stay cutting edge and to educate your patients about so yes. And I'm sad to hear that that's still so often the case and and I think it would be good brandy, if you even mentioned, some of the things that you've done that have enabled you to tighten the control on your a one see, like you have the additional stuff that you

Scott Benner 43:23
look at, maybe let's do that it's Christmas, your mom has gathered up your aunts and uncles and it's time for you to tell them about your report card. Okay, but before you do that, I love you guys together. But before you do that, like let me let me finish this this thought and then brandy, we'll jump right to that. It's a great idea. an ER nurse, who I spoke to anonymously just yesterday recorded with her just yesterday, I asked her the question. In the hospital you work, what percentage of people? Would you be comfortable? And before I could finish the question, she said, I don't trust anyone here to help me with my diabetes. She was talking about in the 1,000th person. I agree with that.

Speaker 1 43:58
Yeah, absolutely. And Scott that that was one of the other incidents after the dka episode, when Brandi got sick, and I again had to take her to the emergency room. We knew that's what she needed. We couldn't fool around with urgent care. They literally took her us into a room. They started they were hanging What was it like two bags, their insulin brandy, they were pumping it way too fast.

Brandy 44:27
They they did. I had some ketones. I needed to get flushed. And at that point in time, I didn't have an an EMT friend that could come to my house to do it. So I went there and told the doctor what I needed, because he was just very flippant, like you're not in DKA. And I was like I know I'm trying to prevent that. It's called preventative medicine. Come on, let's go. So he gave me a shot at he started an IV gave me a shot of insulin hung two bags of saline turned on wide open. They walked out of the room and shut the It

Speaker 1 45:01
literally shut the door and never came back to check.

Scott Benner 45:04
Does that make your blood sugar crash eventually? Oh, yeah.

Brandy 45:08
I mean, it was like maybe 30 minutes or so. And I just looked at my mom and I said, Hey, did you do you have snacks in your bag? And she was like, Yeah, and I said, well go ahead and give me a pack of crackers. Now. I'm gonna crash diluting

Scott Benner 45:21
my blood and my blood sugar is gonna crash. Yeah, yeah. Yeah. Lisa, my daughter had to be in the emergency room for some like belly pain while she was away at college, maybe a month ago, and she ended up there twice. So she spent two separate times 12 hours apiece in the ER 36 hours apart by herself with a roommate. They were scared and she's in pain. They loaded her on morphine, and then never once checked her blood sugar ever again, ever. While she was there, both times no one ever looked at her blood sugar. Doesn't that infuriates? Yeah, the second time I flew to where she was, when I sent her back to the hospital, like the first time after it happened, and I got her out of there. And I was like, Okay, I basically managed her blood sugar from a distance through a proxy, which was her roommate. And that's how I got her through the first 12 hours because she was out of it. And then as soon as I sent her back to the hospital, I literally sent her to the hospital, sat at my computer, bought a plane ticket at two in the morning, drove across New Jersey, to an airport, got on a plane flew to her. And I was in Georgia by 10am. And she was in she was still in the hospital. And they were not helping her still. Like I had to get there and forced them to do what they needed to do. And

Brandy 46:35
I think that's the biggest thing like, I am 40 years old, it does not matter if I get sick. And for whatever reason, I need an emergency room, I will always have somebody with I refuse to go by myself because I know what will happen or what can happen. And I need somebody else who was going to fight for me, you know, and one of the biggest things now is fighting to be able to keep, you know, my CGM and my pump and all this stuff on me. And educate that

Scott Benner 47:05
I asked that ER nurse when I was recording yesterday, what's your best piece of advice? And she said, Don't go to the hospital by yourself. Exactly. That was her biggest piece of advice. So okay, so you're doing I mean, you just pull a five, six a one C, that's pretty terrific. What have your a one C has been like throughout the 20 years? And what improvements did you make along that time to make this number better and better and get you where you want to be?

Brandy 47:30
Honestly, technology was the biggest thing. But you know, I started off I would say, in the between, like in the high seven, for the first few years with, you know, and fallen and just a meter and just trying to figure it out. And honestly being really bad at carb counting because they don't really like they, I remember they handed me a printout of like common foods. And we're like here, this is this is kind of what the carbs are. Like, you know, there was never any discussion of weighing food or doing this or that. So it was, you know, the diabetes education that I received was, you know, when I went in, she was already ready to go to tell me that I needed to change my diet. And then when she asked me what I ate, she was like, Oh, you eat really well. And I'm like, yeah, and then you know, she's like, well, the only thing is you can't have as much fruit as what you normally eat. Which that was that was probably the worst day

Scott Benner 48:28
you enjoy for? Yeah,

Brandy 48:30
I was the one again small town college, I had to drive 20 minutes to the grocery store. And so I was the one at like, three o'clock in the morning, we get a fruit craving and we drive 20 minutes to the grocery store to get, you know, whatever. But anyway, so yeah, so I started off kind of high sevens. And I started on decks calm. And I was able to kind of see patterns more I was able to really kind of dial in insulin better and understand how it works in my body better. And so at that point, then I got down to the six.

Scott Benner 49:02
Let me cut you off for one second. You think you were the sevens for the first 14 years? Yeah,

Brandy 49:06
okay. 100

Speaker 1 49:07
There was some eight. Lowly. Yeah, very well could have been. I

Scott Benner 49:12
gotta be plus, no, I don't remember it that way. I think it was. Yeah. The teachers wrote a note and said you weren't trying hard enough brandy.

Brandy 49:22
And actually, you know what's funny? I don't know if anybody else is like this. I feel like there's probably parents who are like the two numbers are hard. Because we got to deal with numbers all the time. If you ask me. Hey, what's your blood sugar, I will read I will rattle off whatever a number is, but it may not be what my last one was because I'm just so used to looking at the numbers. All the time that I start getting them kind of mixed up.

Scott Benner 49:48
I love this. This little product called glucose. It's this. The I don't know if you know what it is. But it's this little orb. It's just you plug it into the wall. You set it up. It Parris the your Dexcom account, and then basically you tell it in what range it should be green. And it just it at least it's just this little, like, little bigger than baseball sized thing that goes on your desk, and it just glows. Green when you're in range red as you get higher or lower, it flashes. If you get too low, it turns different colors as you get high. And so it doesn't beep doesn't do anything like that. I have one on my desk right now. And to brandies point. The numbers are just they're constant. Like I mean, I don't know what Arden's blood sugar is right? I gotta be perfectly honest with you. It's 11 o'clock in the morning, Arden's home from college right now she's still sleeping. And I haven't looked at her blood sugar once today. But when I woke up in the morning, there was a little green globe on my bureau, and I was like, Oh, her blood sugar is in the range that I set. And then I got a shower. I've done a bunch of things. I came in here and sit down. And this the globe that's on my desk is green. And it's just it's it is such a lovely thing. Sounds

Unknown Speaker 50:59
like a good Christmas.

Scott Benner 51:01
I'll tell you for you. Brandy, you're gonna have to set it up if you got it for ya, Brady, you're gonna have to set it up. Okay, but that's I heard Yeah. I mean, listen, it's cheaper than a house. So I would do it if I would do. But it's just kind of wonderful. Because even in the middle of the night, like, you know, you wake up, you roll over, you crack your eye open. Green light, good. Red light. Alright, I'll pick up my phone and see what's going on. It's it's beautiful. Right,

Speaker 1 51:28
right. Well, and brandy keeps her she keeps her blood sugar's lower than what you like. Well, what the ADA says is in normal range. I think my my range should be this. And so, you know, the the fall too low, is a lot closer. But because of that, but she's obviously doing something, right, because her a one C is so daggone. Good. I mean, it's almost normal. So I don't fuss about that. It's just that it takes her less time to get to 35 then it would somebody that was keeping their, you know, low range at 100 or above ready?

Scott Benner 52:12
Are you getting a 35? Or is this an old like fear from your mom?

Brandy 52:16
Old fear for my mom? I don't I don't get to 35 very often now. I mean, you know, every once in a while, I'll make a horrible mistake. Like last last Friday. I had, I was having a bad day, you know, you have those days that are just horrible. And I accidentally first of all, I have my glasses on, which is probably part of it. So I wasn't seeing very well, I dosed 20 units of insulin instead of 20 grams of carbs. And so yeah, yeah. But I knew what I recognized my mistake right away. And so I just had some orange juice and was sipping on it. Right. But, you know, for the most part, I know, I don't I don't get that low. Yeah, I keep

Scott Benner 52:57
thinking like, this is her these are her fears from when you were younger. And big? Well, it's not

Speaker 1 53:02
been that many years. I mean, we have many, when the Dexcom when the Dexcom just only reads low. In the last number you see is like 42. And then it's just arrows down red and says low because this can't read it. That's not been that many years ago. But I will say that since she has been doing the additional stuff, she's doing the Pre-Bolus thing and keeping a tighter, she's staying within her range for I would say the last year or two that you've really been in that that's not been the case, you know, because she is doing what she needs to do when it's getting into the 50s or upper 40s. But there are still times but of course like I say the lows are what what alarm you and just the fact that because she is keeping such a tight control and keeping it a little bit low where she doesn't have a lot of wiggle room there. Yeah,

Scott Benner 54:02
so a couple things first of all, brand new your mom loves you a lot you know that right? Yeah. Okay. And this is this is my doing isn't it? Brandy is this my fault that your is this is a from listening to the podcast, or it's just an idea that you came to on your own like, I'm gonna I'm gonna go lower and more stable and use less insulin, so I don't get as low and as high like, is that? Where did you get all that from?

Brandy 54:24
Yeah, so Well, I started off. Gosh, I went to my first kind of interaction with this idea was Dr. Bernstein. Oh, sure. And then after that, I found the podcast and I don't remember how I came across. I really don't remember how I came across the podcast. But But no, I mean, that was one of the things i i noticed immediately whenever I was, you know when I'm 85 I feel my best. You know, I'm not crabby. I'm not whatever. And it's easier to kind of stay at 85 Yeah, with my I'm on the tandem T slim control in So

Scott Benner 55:00
I feel like you're you're using? Yes,

Brandy 55:02
yes, I use Control IQ and absolutely love it. And so, because of that, I learned very quickly, I will not treat a low unless I'm under 60. Because it cuts off my basil. And if I just give it 15 minutes, it's going to come back up like it's, you're gonna have a nice little rebound into the 80s. And it's great. So I don't treat a low unless I'm under 60, which does make my mom a little bit nervous. But part of it is because the technology is so new to us. I mean, I waited a long time to get on this because I was so anal about like, control and giving up control to algorithm was like it scared the crap out of me. But

Scott Benner 55:48
I got well, let's go. I just looked at going so well just looked at artists blood sugar, because we're talking and I pulled up our 12 hour graph. Arden hasn't been below 85 or over 116 and 12 hours.

Brandy 55:59
See it? I'm telling you the algorithms,

Scott Benner 56:02
the straightest line that you can imagine we are you low carb or No,

Brandy 56:07
no, I'm not. I've gone back and forth. But honestly, if I do really low carb, I have to sell Bolus for protein. Of course, I can hit me harder. Yeah. So I kind of go back and forth. But I'm, I'm high fruit.

Scott Benner 56:24
But you mentioned Bernstein. So like, when you said what happened? Like, were you looking for an answer, found people talking about low carb and then took something from it, but not a low carb lifestyle? Is that about how that half Correct? Yeah.

Brandy 56:38
Yeah, yeah. I mean, well, I started, I did start doing some lower carb. I mean, I guess, I guess, in theory, according to I guess, whatever the people say about what's considered low carb, I guess I am considered low carb. Because I think I'm maybe eat, I don't know, anywhere between 45 and 60 grams of carbs a day. But to me, that's not really, you know, I'm not trying to beat

Scott Benner 57:07
low I don't think a low carb, a person who was eating low carb would consider 60 low. I just I don't think that Well, yeah.

Brandy 57:14
That's what Yeah, but I mean, you know, I see people post about it sometimes to talking about under like, 100 carbs a day under 100 carbs a day is is low. And I'm like, Okay,

Scott Benner 57:23
well, it's just, it's just personal, like, like experiment preference and stuff like that. I you know, it's funny. He's you sit and talk about on a on a normal day. I don't know how many carbs I eat, to be perfectly honest. Maybe. I mean, if I ate on a day when I ate exactly the way I meant to, which I'll take yesterday, as an example, I had a coconut milk yogurt in the morning, which is probably like nine carbs, or maybe 12. I had a couple of eggs. You know, there might be two carbs and eggs, but probably not. And I had some chicken later in the day. It had hot sauce, but not sugary sauce on it. I might not have had very many carbs yesterday. If I'm thinking about it, but Arden had nachos last night. Well, Lisa, does that freak you out? My daughter had nachos for dinner last night and her blood sugar has been at five to 116 for the last 12

Speaker 1 58:13
hours? No, no, not at all. It does not I mean, and that's the brandy eats pretty much what she wants. You know, and she knows that how to manage Bolus has been wonderful, because that has stopped, you know, the roller coaster spikes and all of that. And I know at one time she was you know, looking into the glycemic indexes and different stuff, you know, just trying to understand the different types of carbs and understand how, which carbs affected her body the most. Because you know, that you could be two things with the same amount of carbs, but one would spike her sugar and the other one would not. So those type things are what I was referring to as far as just trying to, again, empower herself with knowledge, to be able to control the blood sugar more and be as healthy as she possibly can. And, you know, in hopes that anybody out there that listens to this, you know, it might prompt them if they have had no more education from the folks that are supposed to be experts on this that perhaps they can do a little on their own and and you know, if they don't have a CGM get that just be able to follow some of these things that have helped her so you

Scott Benner 59:40
know that one of the I think the greatest things that's come out of this this conversation so far is that your mom Brandy is growing along with you and her diabetes like so often when I do talk to older parents of adults who have had type one for a while. They'll say stuff like Well, I haven't really known much about it since they were thistle. order this whole, but even your mom started when you were in college like it would have been, it would not have been crazy to me if you said it at least if you ended up saying to me, I don't really know anything about diabetes, because Brandi was diagnosed in college, and she's been taking care of it on her own. But instead you, you went right through the whole struggle with her in the beginning, you understood the management back, then you understand how it's been changing for and not just like brandy has been trying harder, like you're talking about things like, no, she was looking at the glycemic load index of foods. So she would know how to Bolus for like, you really understand what she's been doing. Yeah,

Speaker 1 1:00:33
what she's, again, taking it upon herself, seeing that she wasn't getting the help that you would think would be forthcoming that they would make sure that you understood as a diabetic. So she had the initiative to do that. And because we are as close as we are for she shares, you know that with me, and it just it, it helps me to, to feel more reassured in knowing that she's continuing to, to educate herself, and to try to keep this as under control as you possibly can, knowing that there's all these scenarios and factors that affect the blood sugar that you have zero control over at all. And that's, you know, if she's monitoring and managing it, as close as she is, and doing all that she can do, then it makes those times when it falls out of range a little bit easier to swallow and handle. Yeah.

Scott Benner 1:01:36
And Brandy is this is a collection of reasons, right? You guys have good communication, you're willing to tell her stuff she's willing to ask, she's not judging you. She's not pushing you. You set boundaries, she follows them. Like it's working for all of those reasons. Is that right?

Brandy 1:01:54
Yeah, absolutely. You know, I mean, it's, it's one of those things where, you know, too, she understands that it's, it's, I mean, as much as I don't want to ever be like, Oh, hey, my name is Brandi, I have type one diabetes, it's one of those things where it, it is a part of my daily life, every single day, as much as I don't want to identify as that it still is very front and center. And so she gets that and she understands like, you know, it doesn't define you, but it is a very large part of your life. And so, you know, when I go to the doctor, I'm like, Hey, this is what was said, and, you know, this is what we talked about. And, you know, this is, this is how things are going. You know, recently, I actually have fired my Endo, and getting a new one. And so, you know, it's it's that whole, the struggles of going through, you know, with help getting help and needing you know, someone to listen. And so she 100% understands that and so we have kind of that open communication around everything, just like you know, I find protein noodles are better like I had alfredo pasta last night that I made, and I spiked my highest was 140. So you know, she she gets it?

Scott Benner 1:03:16
Is does this just apply to the diabetes? Or is this your entire relationship? Like, are you guys like at each other's throats over different things, but on this you're simpatico? Or is this just how your relationship works? And how much of this do you think has to do with you being an only child?

Brandy 1:03:30
This is 100% Our relationship just with everything. And so like I said, we I just moved two weeks ago, yes

Scott Benner 1:03:39
to your palatial estate I heard go ahead with your two masters degrees.

Brandy 1:03:46
have moved, like many, many times, I am a terrible, terrible person when it comes to moving. I don't know how to pack correctly. Like my mom over the years, has really had my back. Well, she wasn't able to really help with like, me packing or getting the house together this time. And she she felt bad about it. She was just like, I am so sorry. I had no one to be there. Well, Monday night before we moved, she came over to my house. She packed a bag. And so she stayed with me that Monday nights. And then she didn't leave until last Wednesday before Thanksgiving. So she was there for a week and a half through the move. We got every single box and pack and everything put away, though. No, this is this is our normal relationship. And yeah, it's 100% because I'm an only child and you know, that's, that's always been our relationship

Scott Benner 1:04:40
at least Are you married?

Speaker 1 1:04:43
Yes. So, yes, I have. I have two stepsons, 30 and 26. Wow. Two boys. Yeah, one still at home

Scott Benner 1:04:52
with us. At least I didn't ask but I'm gonna ask now. How old are you? Six.

Speaker 1 1:04:56
I just turned 64 last week. gratulations

Scott Benner 1:05:02
Oh, well, this is terrific. And Lisa, you're married. It sounds like

Unknown Speaker 1:05:06
yes, yes. Oh,

Scott Benner 1:05:07
I'm sorry. I meant brandy brandy. You're married?

Brandy 1:05:09
No. Well,

Scott Benner 1:05:11
you said we, I was gonna say You said we are gonna do a thing. Okay, so you guys, yeah. The guy who doesn't owe you money if he bails?

Brandy 1:05:22
Well, our both of our names are on, on the deed. So

Scott Benner 1:05:27
yeah, I don't know how many boys you've met. But you might want to like legal this up a little bit. Like,

Brandy 1:05:32
well, actually, it's more him. I think, honestly, he is a former professional basketball player that has retired and decided that he wants to have a homestead and he has zero experience whatsoever with farm animals. I'm the one that has the experience with farm animals. So it's about to be really,

Scott Benner 1:05:53
I don't know if everybody heard brandies. Next, humble brag that she she pulled a former NBA player but like,

Brandy 1:06:00
he's not NBA, not basketball.

Scott Benner 1:06:03
I don't care. He's still athletic and muscular, right. I hear you, I know what you're doing.

Brandy 1:06:15
He's goofy and in the anime, so I don't really know that.

Speaker 1 1:06:20
He's, uh, he's, he's a wonderful man. And just what Brandi needs, she was talking earlier about not being able to pack brandy can be described as a collage, you know, that's kind of been her lifestyle, kind of a collage, you know, something, I'm go, I'm over here. And this bright, shiny thing catches my eye. And now I'm over here. That's a part of her personality. So, you know, the whole diabetes and her attention to it and the detail and the, everything she's put into it has kind of been an exact opposite of what is her natural inclination. So that's, that's been interesting in of itself, but it's because of the severity of the whole situation. You know, she's learned that she has to be pretty rigid where that's concerned. And then she can just be more freestyle. With the rest of her life. The fella in her life is a wonderful man who helps helps keep her grounded. So it's been a good thing. Maybe you're not, or you're not, and I'm blessed to have have had the relationship with her. Oh, yeah, we do have Oh,

Scott Benner 1:07:35
it sounds like it. No doubt. Brady, are you not in the private Facebook group? I am you are. It's a different last name, though. Yes.

Brandy 1:07:43
I was gonna say actually, I think it's hilarious that my mom described ADHD as a collage.

Scott Benner 1:07:52
So you have ADHD.

Brandy 1:07:54
Okay, I've never been formally diagnosed. But I mean, I'm a licensed clinical social worker. And I see all of I tick all the boxes.

Scott Benner 1:08:02
Right? Okay, I tick all the boxes, I'm pretty sure. Okay, all right. So I think I understand everything I got, I got a pretty full picture, or is there anything that we haven't talked about that we should have? You know,

Brandy 1:08:15
I mean, originally, like, I had reached out to you about coming on here. Because, you know, there's so I see so many people in the Facebook group, parents with their oh my gosh, my kids going off to college, and, you know, so concerned and worried, and I totally get it, but I just wanted to kind of, you know, share an experience of I was diagnosed at college a way and you know, had zero idea of what I was even dealing with, and we made it through.

Scott Benner 1:08:47
No, I mean, you've done we've done astonishingly well, especially because that that diagnosis that moment of you're in school, you know, I mean, I've helped Arden through some medical things while she's away at college. And it's, you know, it's not easy. And we have CGM SMS, and text messaging, and you know, like a lot of things you didn't have 20 years ago. So and your mom, I mean, we didn't even talk about No, like, if 20 years ago, your mom had a 10 year old car, right? Even the idea of hopping in the car and driving two and a half hours somewhere. I don't think people now in a modern time realized how crappy cars used to be. Great, Lisa, it was a big deal to go on a long car journey.

Brandy 1:09:27
You know, it's really funny that you say that. My mom is laughing because my mom has a 1999 Toyota Camry.

Speaker 1 1:09:34
I'm still driving the same car that I was when she was diagnosed she

Scott Benner 1:09:39
didn't get she didn't get into her like computer on wheels that doesn't let in road noise and doesn't shake and go zero to 60 in five seconds. Like she can do a car and she's like, I hope this thing can gets there. And like, exactly right. And so it's even those little things like I went and picked up food last night for Arden And I went in, I paid with my phone at the, you know, the place. And I watched these three young girls just think nothing of the fact that she said, how do you want to pay and I pulled out my phone held up to my face and held it out with my hand over top of another piece of plastic to transfer $60 to her. And I said to the girls, I'm like, This is not remarkable to you at all, is it? And they were like, what old person? And I, I said, I just took a magic box out of my pocket and gave the owners of this establishment $60 Like, and the one girl goes, I know what you're saying. And I was like, right, I was like you guys don't know. And the one girl looked at me like, You got to shut up, man. My dad says this to me at home too. And I was like, But you like it. We live in such a weird inflection point in time, that there are still people alive, who remember like before cell phones and the internet and cars were not a thing you just have has no one noticed that over the last 20 years, you don't see cars broken down on the side of the road anymore. But when I grew up, the roads were littered with broken down cars. It happened all the time. And now even like they figured out how to stop that from happening with as much frequency. And anyway, I'm holding my phone up and these girls are like, you should just take this food and leave. Like, please leave. i

Brandy 1:11:21
The broken down car thing though. I think that's just the northern versus southern thing, because you guys deal with snow. And you have to have stuff clear. If you are down here in the south, there are still cars quite often on the side of the

Scott Benner 1:11:37
road. Okay, well then buy new cars. But I mean, that might be but actually that might be a financial thing more than a weather thing. Because maybe I just live in a place where people own more newer automobiles, which is possible. I live in New Jersey, it's the home of banks and pharma company. So people are out here doing okay. But it really is. It's just an interesting like technology event. Like, here's my point on cars, you can go by still today, you could go lease a car for $80 a month that will go for 100,000 miles and generally speaking not cost you a ton to keep it up. Like that's insane. You don't I mean? Like it just it really is. I don't know. Anyway, these girls were looking through me like, oh my god, this old fat guy wants to talk about my phone via magic. I just want to stare at the wall. And I walked outside my daughter goes what took longer. And she goes what happened in there. And I said I was trying to explain to the girls how the phones she's like that just leave them alone. I was like what they don't know. And she goes, they also don't care. And that was like that. That part? Yeah. Anyway, you guys were terrific. I really appreciate you doing this. Thank you so much. Thank you. It was a pleasure. It really was Hold on one second for me. Okay. Okay.

Come meet me live in Orlando, Florida, September 14 2020. Ford go to touched by type one.org. Go to their programs tab, click on annual event. And right there, you'll get your absolutely free tickets, all you have to do is register. And we can take a picture together or I'll talk about diabetes stuff or something like that will happen in Orlando. And if I suck, who cares? You'll be in Orlando. It's fantastic. They're very sorry, very nice. I want to thank the ever since CGM for sponsoring this episode of The Juicebox Podcast and invite you to go to ever since cgm.com/juicebox, to learn more about this terrific device. You can head over now and just absorb everything that the website has to offer. And that way you'll know if ever sense feels right for you. Ever since cgm.com/juicebox. Get rid of that fu mu baby get rid of it. By getting yourself a beautiful on the pod five on the pod.com/juice box. There's no reason for you to be wanting and wishing and hoping when there's a link that all you have to do is click on Omni pod.com/juice box go to Bliss get rid of that foo if you or a loved one was just diagnosed with type one diabetes, and you're looking for some fresh perspective, the bold beginning series from the Juicebox Podcast is a terrific place to start. That series is with myself and Jenny Smith. Jenny is a CDC es a registered dietitian and a type one for over 35 years. And in the bowl beginning series Jenny and I are going to answer the questions that most people have after a type one diabetes diagnosis. The series begins at episode 698 In your podcast player, or you can go to juicebox podcast.com and click on bold beginnings in the menu. If you're not already subscribed or following in your favorite audio app, please take the time now to do that. It really helps the show and get those automatic downloads set up so you never miss an episode. So thank you so much for listening I'll be back very soon with another episode of The Juicebox Podcast the episode you just heard was professionally edited by wrong way recording wrong way recording.com