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Podcast Episodes

The Juicebox Podcast is from the writer of the popular diabetes parenting blog Arden's Day and the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad'. Hosted by Scott Benner, the show features intimate conversations of living and parenting with type I diabetes.

Filtering by Category: Dexcom

#504 Allergic to Insulin

Scott Benner

Sacha Cardinal has type 1 diabetes and is allergic to insulin.

Check out her GoFundMe

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to Episode 504 of the Juicebox Podcast.

I'm squeezing an extra show in here this week and why now it's because Sasha is allergic to her insulin. Well, she was. And she, well, she is. But now there's a workaround. And it's fascinating. Sasha just graduated from high school, she lives in Canada, she is allergic to insulin, allergic means painful raised welts, and decreased efficacy. What follows is her story. And we'll find out together what she was able to do. It's a really interesting story. Please remember, while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. or becoming bold with insulin. I want to thank new members of by me, I don't even know how to say this. There's a buy me a coffee link where people can become members of the show. And part of becoming a member is getting a shout out on the show. So the first time you become a member, get your name, shout it out. So I've got a list for you here before we get started.

Thank you so much to Jeanette, Jennifer, Daniel, Grace, Julie blue, Leah, Melissa, Larissa, Alison, Marilyn, Shannon, Sue, Nancy, and Jessica for becoming members and supporting the show. Like you are really amazing. Buy me a coffee calm forward slash juice box. And a sincere thank you to many of you who just bought me a couple of cups of coffee and didn't do it annually. But still, it's really amazing, but out to use some of your money to buy hard drives, hubs, and a few other computer based objects that I need computer based objects who says that anyway, thank you. Right. Before we get started, I'd like to remind you that if you go to T one d exchange.org, forward slash juicebox. And fill out the survey completely. The show benefits and so to you. As a matter of fact, I saw someone on Instagram today who became a T one D exchange supporter they went they filled out the survey the survey super simple, I'll tell you about it a little later. And they are in the middle of doing a trial for a CGM company testing their adhesives. It's kind of an interesting little thing that came from being part of the T one D exchange, you don't have to do stuff like that. The T one the exchange is happy to just have your, your brief questions to their to their short survey. By the way, you have to be a US citizen type one or US citizen caregiver of a type one. But anyway, other possibilities do pop up afterwards. It was so cool to see someone online doing something for everyone with Type One Diabetes. And when I kind of liked their posts, they said I'm here because of you and I thought oh, that's really cool. So T one d exchange.org. forward slash juicebox.

My name is Sacha Cardinal. Sacha How old are you? I'm eight in October. Wait, you're definitely not eight years old. So I didn't hear everything you said. I don't think how old are you? I'm 18. In October in October, you'll be 18 Are you still in high school? Ah, yeah. I just graduated in June. Congratulations. Thank you. Like last month? Sorry. Like last month you graduated? Yep. It's kind of exciting. I mean, is it exciting? Or is it just like, oh, now that's over? Yeah, more like oh, it's over. Are you Do you have plans for university? Yeah, I'm going to you Ottawa. Nice. Congratulations. You have a focus something you're thinking about studying. criminology definitely. criminology. Okay. Excellent. What made you interested in that? I really know. You're definitely doing it. But you're not sure why. Yeah, exactly. It sounds like my days plans. How old were you when you got diabetes? I was two years old. Oh, you have been rocking this for a while? Yeah. So you're

Unknown Speaker 4:40
18

Scott Benner 4:42
just about we'll call it anything. Your you've had diabetes, pretty much your entire life. Yeah, What do you remember about it from when you were little?

Sacha Cardinal 4:55
Not a lot. Mom was doing most of the work. When I was little, so I just remember having to give insulin when I was eating, and that's about it.

Scott Benner 5:06
No kidding. So it was sort of really part of your life, not something that you think of is this extra thing that happens? No, definitely not interesting. Okay. My daughter was also to and she was diagnosed, and she's going to be 17 in a couple of weeks. Oh, wow. So you guys, probably what were you 2005? Maybe when you were diagnosed? Ah, yeah. January genuine. rarey. 2000 602 1006. Yep. So my daughter was diagnosed in August that year. So you guys really have almost had diabetes the exact same amount of time? Yeah, like seven months. That's interesting. So. And Arden, my daughter, Arden has a very, I think, similar experience in that she doesn't. I don't think about diabetes. In the same way who somebody who maybe was diagnosed when they were a little older, and and remembers like a stretch of time not having it may describe it. So the entire time you were young, were you using? Would you start with needles and how did you start managing? Like, what was your mom using when you were a little?

Sacha Cardinal 6:18
Um, when I was when I first got diagnosed? I had the needles, but then when I was four, they gave me the insulin pump.

Scott Benner 6:28
Okay, so you had a pump since you were four years old? Yes. You know how old my daughter wasn't? She got a pump. Sorry. Do you know how old my daughter was when she got a pump? No, she was for a while. guys might be twinning the whole thing here. And we'll see as we go. So what pump were you using? When you were four? Had the Animus? And you're in Canada, correct? Yeah, yes. Okay. So your health system is a little?

What's the word I want? It's slower to make changes, maybe. Is that fair? Yeah, I think it would be fair to say, okay,

so you're using animist pump since you were four? And Gemini real issues, managing your diabetes? Was everything pretty normal?

Sacha Cardinal 7:21
everything's pretty normal except for the allergy. When do you have to insulin?

Scott Benner 7:27
Yeah. So is that the entire time? And since you're too, or is it something that just started to happen? No, it just started to happen. Like, what, a couple years ago? Okay. So maybe, I'd like to know about that. What was the first thing you noticed?

Sacha Cardinal 7:46
Um, well, it started, it wasn't really an allergic reaction. I just started to get really big bumps on my legs to begin with about almost five years ago. And then last year, in February, I got hospitalized in DK a. And that's when they realized that something bigger was happening than just like little reactions of resistance to insulin. And so in June of 2020, they did some tests and testing and everything. And that's when they realized I was allergic. I had I was like, reacting and everything. And then February this year, that's when they did the test to see if I was allergic to insulin.

Scott Benner 8:38
And they found out I was okay, go back to the bumps on your legs, like mosquito bites. Um, no. Bigger than that, like a big bruise, like a big bruise where they raised up. Yep. Do they hurt? Yeah. Okay, all over just your legs. Like anywhere, I would inject actually Oh, at injection sites. Gotcha. Okay. What kind of insulin are you using? Where are you using?

Sacha Cardinal 9:10
I was using the Nova rapid at the beginning, and then they change me to all kinds of insulin, but they would all do the same thing

Scott Benner 9:17
no matter what. Okay, so, just I'm gonna just talk to you for a second. I know you're young. So I don't want you to be upset. But when you realize that you're allergic to the only thing keeping you alive, what do you think about?

Sacha Cardinal 9:35
Um, well, the first thing that came to my head, like I already have diabetes, why do I have to have like an allergic reaction to it as well?

Scott Benner 9:45
Did you ever make the distinction in your head? Like, what happens if I can't use the insult anymore?

Sacha Cardinal 9:51
Yeah, it's definitely something we were all thinking about.

Scott Benner 9:55
Yeah, yeah. So but you felt like there was a way to deal with it.

Sacha Cardinal 10:01
Yes and No, at the beginning I did but then again, I wasn't sure anymore.

Scott Benner 10:07
Okay, so when it first happened, you thought this is just a problem, we'll fix it. Yeah, right. Okay. How long does it go on before you start worrying that? Maybe there's no fix? Um, a couple years, about three years. Wow. So when I realized that nothing was gonna happen, so for three years, you're just using insulin, and it's making these big welts on you? Yep. did that affect how you ate?

Sacha Cardinal 10:36
Um, it did in the beginning, but then after a while it did. Um, because the insulin wasn't being absorbed in my body. And so my always high but I didn't want to give myself insulin either since it was hurting after a while. So sometimes I would like skip meals or like, skip snacks to like, eat something that doesn't have high carbs or things like that.

Scott Benner 11:01
Okay, so, so not only was the the raised up welts happening, but you weren't getting the effectiveness of the insulin that you would expect. No, exactly. Did anyone ever tell you what the raised up bumps were? Um, it's inflammation in the fat tissues. Okay. All right. Well, this seems like scary. Like, I know you're young. So you're probably all like, it'll work out because that's what happens like something. Something goes wrong, and then we fix it. And that's life. But that's frightening. Like, were your parents like, freaked out? Like have they told you since then, like that? They were really worried or?

Sacha Cardinal 11:41
Yeah, my mom was stressed out that I know for sure. But I think which because firming really know how many people would be allergic to insulin like, in the world or anything. Like for me, it was just another problem that doctors knew about right? But then we actually realized that only three people in the world were reacting that like having this treat, like to insulin the way I did,

Scott Benner 12:09
yeah, it didn't matter which insulin It was. It just you have this reaction and really just three people like you're one of three people. Yep, Sachi. That's incredibly unlucky. That sucks. Yeah, wow. really does No kidding. I'm sorry. That's terrible. Hey, just for fun for a second. How does your mind know? She's right there. But how does your mom act when she's stressed out? Um, she's not herself. That's for sure. But, um, how can I say it? You mean? How can you say so? She won't get mad at you when you say it. Is that the question? Yes. Yeah. Um, she starts acting up, if that makes sense. That's how you talk about children when they get upset when they're tired. Yeah, exactly. Okay, that's fine. We won't tell her that part. You she's gonna listen, but it doesn't matter. We're just but I mean, my point was that it's stressful for everyone. Do you live in like a kind of like a standard families or dad? Do you have a dad and siblings?

Sacha Cardinal 13:13
Yeah, I do. Well, they're separated. But I do see my dad every week and then my mom and the other week. Okay. Do you

Scott Benner 13:19
have any other brothers or sisters? Or do you have any brothers sisters? Yeah, I actually have two brothers and one little sister. Do any of them have any autoimmune problems? Nope. Nothing? celiac? Nothing at all. thyroid? Nope. Does their hair grow weird and that's not an autoimmune thing. Nevermind. Okay, so Okay, so you really are like the one in a million here? Yeah. Okay, so. So what ends up being the fix for this. Um, so they actually inserted a dire port in my belly. Okay, in the domino cavity. Um, so that the insulin would go, would like be absorbed by my body, but not in the subcutaneous part of it, since that's where I was reacting. So that's so in the end. It's not the insulin. Well, it is you're allergic to the insulin, but it's in this subcutaneous system, like, that's where it's bothered. So if you get the insulin deeper than that in your body, it's fine. Yep. Wow. So so there's a I've been looking online since I knew you were gonna come on. So there's this like, Did you get to see it before they put it inside? You? Know what? Sorry. Did you get to see the diet board before they put it inside of you? I did. Did it freak you out? Yeah. How big is it?

Sacha Cardinal 14:58
Um, it's sex. Should not that big it's like the size of like, I can't even. I'm okay, you know, like that little button you have on your gene so you can type them up. Yeah. about that size. Yeah,

Scott Benner 15:17
it's like so a button size. I was hoping we're gonna pick a coin like a Canadian coin that had a funny name. That was my hope when you started describing the size of it. I don't think you have like a loonie, or is that England? What am I thinking of? Yeah, the loonie, but it's smaller than that. That's what I was hoping you were gonna say just so you know. Okay, so it's about the size of a button. And is it very thick? Or is it very thin? What is it?

Sacha Cardinal 15:44
Um, it's thick, since it has to go all the way to the abdominal abdominal cavity. And it also has to come out of my body. So I can like, put the little port on it so I can inject. Okay, so definitely tick, but nothing more.

Scott Benner 16:03
Gotcha. So this button is under your skin, but it has a port that comes through your skin. Yeah. Ah, and then how do you handle swimming, for instance?

Sacha Cardinal 16:18
Um, you do have to cover it for a little bit. But then after a while, you can just

Scott Benner 16:26
put the like reconnect when we're just like you want to take like a wine cork and stick it over top of it or? Um, yeah, well, we have what they call the ghetto. What's it called? I'm sorry.

Sacha Cardinal 16:42
together. It's just like, a clear cover that you put on top. Oh, teraterm. Yeah, exactly.

Scott Benner 16:50
Are you from Canada originally? Are you from Europe? Canada. Okay. I love your accent. And your mom's is thicker. I like it. No, don't be sorry. I'm having a great time. What do you mean? Sorry? You apologizing for how you talk? I don't like my accent. Really? How come?

Sacha Cardinal 17:06
I don't know. It sounds like French. So it's like, I don't know. I sound I sound like weird when I talk in English. Oh,

Scott Benner 17:15
I see. So what's so you speak French at home? Usually? Yep. Interesting. Alright, so hold on a second. Introduce yourself again. Like we're restarting the podcast and say you have type one diabetes, but say it in French? Hello. manasi Sasha gullfaks. She jiobit Super. Oh, wow. So English is not your first language? No, it's not. Ah, do you speak it just at school? or How do you do? How do you do that?

Sacha Cardinal 17:51
Um, yeah, basically just at school or like at work when like, I have clients that are English.

Scott Benner 17:55
Interesting. I don't know why you don't like your accent. They're like, are you aware of it? Yeah, I am. So so it's uncomfortable for you to talk to me like this because you're thinking I sound funny.

Sacha Cardinal 18:09
Yeah, like when I compare myself to others, I'm like, Oh,

Scott Benner 18:13
I shouldn't do that. Nobody cares. I have to be honest. I know. You're young. And it feels like everybody like looks at each other. And nobody really, it doesn't matter. Nobody. It doesn't matter what anybody thinks. I think your voice sounds great. So don't worry about it. very welcome. Alright, so they've got to put this thing in your abdominal cavity. And this is a lifelong situation, right? There's no better answer than this. This is the one. Oh, yeah, this is the one Okay. Does it hurt? No. All right. Can you feel it through your skin? I could at first but not anymore. Okay. And so, are you getting much better reaction to your insulin? Like did your Basal rates change and stuff like that? Like, do you need less insulin now that it's being absorbed this way?

Sacha Cardinal 19:08
Yes, and that's another type of insulin, I get the same amount of insulin except it's less concentrated.

Scott Benner 19:14
Oh, okay. So this is not you didn't go back to Nova rapid or something like that? No, you can't with that system. So what are you using? Um, I can't tell you the name because it's in Wait, like cuz you're a spy. And if you tell me you'll have to come kill me or something like that or what? Cuz you

Sacha Cardinal 19:36
know, um, cuz everything that like the insulin is actually from Germany. Because that's where they have that Daya port and like from Europe. Oh, so everything on that low like insulin bottle is written in Germany, you're using,

Scott Benner 19:53
you're using it insulin, and the bottle is not in any language that you speak Nope. So you would tell me what it was called. If you had any idea what it was called. Exactly. Well, hold on a second. What happens if you like, need to go to the pharmacy and ask for it? Um, I bring an empty bottle. This morning this lady. Yeah, exactly. So I I just googled Daya port insulin Germany and under images you're like the fifth hit. Oh, really? Yeah. With a picture of you wearing a shirt from the office. Oh, the one from to Okay, so you have Wow, this is fascinating. I I just thought for certain I'd see the insulin, but it's just not there. At the Ottawa Citizen calls you diabetic team, diabetic teen allergic to insulin injections undergoes first in Canada operation. Wow, the ones ever had this before in Canada, but you

Sacha Cardinal 21:09
know, actually no one on I call it the left side of the planet. So like the only place that has it is

Scott Benner 21:18
Europe. What do you think they call their side of the planet on the right side of the planet?

So beginning to really like you. Alright, so you're saying that you look, I know, this isn't about diabetes. But when you look at a map, canvas on the left side? Yeah. That's really interesting. Do I need this? Anyone else say that? Or is that just the thing you say? Um,

Sacha Cardinal 21:51
I never heard anyone else say it. I just started using that phrase the other day when I was trying to explain that only Europe had it. Okay, but I was losing my words. And then I was like, well, the left side of the planet doesn't have the diet for

Scott Benner 22:07
soldiers just in your head and not out loud for a second. Explain that in French in your head. Does it come out differently when you think about it in French?

Sacha Cardinal 22:22
Not really, actually. When I think about it, no.

Scott Benner 22:25
Okay. All right. I was just wondering if it was one of those things where you just didn't have the words. And so you just read for the closest word you had? You got a little softer. Do you know I get? I'm not sure why your voice got softer. Is it good? No. It's still sort of the same. I think sometimes you just get excited and you speak more loudly than when you're talking at a normal rate maybe? Yeah, that might be Yeah. All right. So. Okay, how long is the surgery that puts in the port?

Sacha Cardinal 22:59
So it's about 20 minutes for in Europe since like they already are used to it. But in Canada took an hour and a half.

Scott Benner 23:11
Come on Canada. Right now. That makes sense. Were you asleep for it? Or was it a local? asleep? you're asleep? Okay. Scar? Yeah, I do have one. Does it suck?

Sacha Cardinal 23:29
I think it does. People are telling me it doesn't really show but

Scott Benner 23:33
my daughter had to have a little cyst removed from near her fallopian tube, like a year or two ago. So she has these little scars on her belly now. And I have to say, I don't think she cares. Like I think she got used to it.

Sacha Cardinal 23:49
Yeah, that's what everyone keeps telling me that I'll get used to it. Yeah.

Scott Benner 23:52
What do you think you think you'd rather not have a scar on your stomach? I

Sacha Cardinal 23:56
definitely would rather not have one. But, but saving my life right now. So

Scott Benner 24:02
yes. It's an incredibly interesting thing. Isn't it? Like you have a problem? That if it wouldn't, have you thought about this, like, if you were born in 1950, they probably would have been like, we can't help you.

Unknown Speaker 24:17
I know. That's really crazy, right? Yeah. You're lucky in a weird way.

Scott Benner 24:25
But you don't need like, it's how you think about it. Right? You can either say I'm unlucky because I got diabetes. I'm incredibly unlucky because I'm allergic to insulin, and apparently no one else is. Or you can say that that was going to be true no matter what. And I'm really lucky that the technology and the medical understanding exists to mean that they saved your life. Really? Yeah. It's pretty crazy. I would think of it as being lucky if I was you. I'd call that my lucky scar.

Sacha Cardinal 24:54
Yeah, well, I like to say that I'm only like one of like three people.

Scott Benner 24:59
Yeah. And I don't know those other two people. So basically, you're the only one. Yeah. Just exclude that if you want. Oh, are you the only one in Canada? Maybe we could get you to the number one ranking somehow if we think about it. Yeah, the only one in Canada. Nice. So you're like a Canadian superhero, basically. Yeah. Right. That speaks that speaks French. Which is your superhero name? Um, I didn't think of that. No. All right. If it comes to you, let me know. So this thing goes in, you're able to begin using it right away after the surgery. And immediately, you can dial your blood sugars in and get your blood sugar better than it was. Yep. And no bumps. No bumps. Was that exciting? A little or?

Sacha Cardinal 25:54
At first, I was a little bit anxious because I was like, yeah, maybe right now. It's not reacting. But what about in like, a couple injection and then it's doing like big bumps again. It's a reason now it's been almost a month.

Scott Benner 26:12
You only had this month? Almost. Yeah. Three weeks? Wow. You're on the podcast because one of the listeners of the podcast, sent me a note and told me about you. I didn't realize that it only been a month. Yeah. Wow. You're like brand new, basically. Yeah. But you stopped you've been able to stop keep being concerned that it's going to stop working. Yeah, cuz right now it's perfectly fine. Along nice. Do you use a glucose monitor by any chance? Sorry, do you use a glucose monitor like Dexcom or a Libra or anything like that? Yeah, t Dexcom. t 66. Okay, so you can you really see the difference right now in your blood? sugar's Uh, yes. I went from 30 to four Wow, whoa, whoa. Oh, so you your blood sugar was you How long had you been leaving it highlight that? Three years now. Oh, holy. Can we curse? I mean, I can't if I want to. It's my I just don't know you're under age, but I was gonna say holy.

The T one D exchange is looking for type one adults and type one caregivers who are us residents to participate in a quick survey that can be completed in just a few minutes from your phone or computer. After you've finished the questions and they are simple I did in about seven minutes for Arden. You will be contacted annually to update your information and to be asked further questions. This is 100% anonymous, HIPAA compliant, and does not require you to ever see a doctor or go to a remote site. Every time someone completes the process using my link, the podcast benefits. So if you've been looking for a way to help T one D research, the podcast or both, nothing could be easier or more beneficial. T one D exchange research has led to increased insurance coverage for blood glucose meter strips changes in the ADA, changes in the American Diabetes Association guidelines for pediatric a one c goals. This is a big deal whether you know it or not. The FDA is expansion of Dexcom labeling to include finger stick replacements and Medicare coverage of CGM devices. And there's a lot more going on. Like I said, I saw somebody online the other day involved in a in an adhesive trial. They've got like four different spots on their arms, and they're just helping out. Now you don't have to do that. You can just answer the questions and be done with it. But if more opportunities come up, and you're interested, they'll let you know. T one d exchange.org. forward slash juicebox. There's links in the show notes. Links at Juicebox Podcast comm it only takes a couple of minutes to complete the survey. That's crazy. Say holy French for me. Holy cow. Wow, that was a letdown. Okay. You're Wow, your average blood sugar was in the five hundreds. And your a once he was like 21 ish. Um,

Sacha Cardinal 29:27
well for us it goes up to 14 so mine was higher than that. But we don't know the exact number.

Scott Benner 29:35
Do you feel a lot better? Definitely. Yeah. Kidding. So were you like, brain fog? Like, didn't have a lot of energy, all that stuff? Yeah, and I was always grumpy. Yeah, no kidding. Always grumpy might be the name of your episode. But that was um, wow. And but that was your only option. Yep, I'm sorry. That sucks. Well, your life is about to get so much better. Yeah. Good for you. Well, no kidding. Don't go crazy. You don't I mean, dude, I'm saying, like don't start running around with weird boys and doing stupid stuff and yeah, I mean maybe it's too late for that. Oh by the boys already weird. Yeah, joking. Wow Do you feel like can you describe how you feel like thinking about it? relief? Mostly. Um but definitely here say it again I'm sorry. happier happier. Yeah relieved, like in the big sense like did you think you were gonna die? Um, after last year? Yeah, I did. Is it hard to keep taking school seriously and worrying about things that you think aren't gonna matter? Because you won't be here?

Sacha Cardinal 31:14
Um yes and no. Cuz I still wanted to in my head like sometimes when I would stop and like think about it, then I was like, yeah, there's big chances that I won't make it to my 20s. But on the other side, when I was just running around doing things and not thinking about it, it was more that while you have to get your grades up to go to university, you have to do this. Like, I wasn't thinking about not being able to see that time either.

Scott Benner 31:52
Was it difficult to keep your grades up with your blood sugar that high?

Sacha Cardinal 31:56
Yes, and it was hurting so bad that the only thing that was going through my mind when the teacher was talking or anything was the pain and the

Scott Benner 32:07
pain from your your blood sugar being from the injections, oh, from the injection sites. So you were caught in a loop, where you couldn't give yourself enough insulin to bring your blood sugar down. So your higher your you know, all the things that go along with a very high blood sugar. And then on top of that each and every one of your injection sites was in pain. What kind of pain sharp stabbing dull, achy?

Sacha Cardinal 32:38
Um, there's actually no word to describe that pain, because it's like, all mixed together.

Scott Benner 32:45
Did it burn it? It did. I'm so sorry. And so every time you thought to give yourself insulin, you knew you're gonna create another one of these pain centers? Yeah. Were they better anywhere on your body over other places? Or did it not matter where they were? No, it did not matter. Holy crap. Wow. Yeah. Oh, geez. Did you cry a lot? I did. I was just thinking I would cry a lot. You know? Did were your friends aware of your situation?

Sacha Cardinal 33:20
Some of them more. But the ones that were aware of it, they didn't know the full story. And they did not know how bad it was? Or how about how bad it was like getting? I should say,

Scott Benner 33:36
if you don't have an answer to this next question, that's fine. I just want to ask it. Is there conscious thought that goes into how to pretend to not be in pain?

Not really, but are you trying to just act like it's okay.

Sacha Cardinal 33:56
Yeah, that's mostly how I was trying to cope with it. But it was always there.

Scott Benner 34:05
So walking, sitting, didn't matter. Walking

Sacha Cardinal 34:09
was the worst. Because especially when I was injecting all my legs, or my arms or like even the belly, like sitting down, getting up walking around, like everything was like my legs were moving, my arms were moving. My belly was moving. So like, you could feel the bumps. And then sitting down. It's, um, you were like, kind of relaxed, like you're relaxed when you're sitting down and everything. So you could feel the pain that way as well. And then standing up was putting so much pressure because there were bumps and they were heavy. So you could feel the pain and the pressure from these sending up as well.

Scott Benner 34:53
Oh, so not only were they painful, but they were pulling on your body too. Yep. Could you? Is it gonna sound strange? Or maybe it won't? Could you feel them when you're sleeping? Um, sometime? Yeah. Yeah. Like, do you get that feeling like you're never quite completely asleep and you're aware of the pain even when you're?

Unknown Speaker 35:14
Yeah, yeah,

Sacha Cardinal 35:15
I would get the max I had of sleep was five hours.

Scott Benner 35:21
Wow. And it's been going on for three years. Yeah, the pain and everything three years. And today you don't have any pain? No. Wow. That's amazing, isn't it? It's kind of magical. But there's a problem with all that, which is, some of this isn't paid for by?

Sacha Cardinal 35:43
No, actually, nothing is paid for right now.

Scott Benner 35:46
Nothing. So the surgery for the for the implant that wasn't covered by what do you guys call it the health? What do you guys call that? Um, Health Canada, Health Canada. Yeah. Health Canada, except for Sasha is what it should be called. But so the surgery your mom and dad had to pay for.

Sacha Cardinal 36:09
So on that side, we were lucky. The company that that I import, which is called a clash. They decided to pay for the surgeon from Germany to be flown over here. They also paid for the surgery. And they're paying one year of

Scott Benner 36:37
how can I say it like insulin fight and everything? Oh, the the site? So the tubing and all the other stuff that goes with it? Yeah, exactly. Gotcha. But then after that. Let's just say Justin Trudeau is not willing to pay for it. Is that right? Oh, yeah. Can we put it on him? Is that possible? He's getting gray. Haha. I know nothing about the man. I don't mean but I just I just pulled up a photo of him real quick, late. I was like it was beard back. Right? Must be a stressful job. So so we know maybe I'm maybe I'm getting ahead of myself. I was gonna say you need a plan here. But maybe not. You're independently wealthy, and none of this matters. I'm like, you guys have not really dollars in the bank. Sorry, you guys have like millions of dollars in the bank? And you just? I wish not. Okay, so. So there's costs involved here that the health care system in Canada won't pay for? Is it just a matter of you having to explain it to them? Or have they already had it explained? And they were like, No, thank you. And I

Sacha Cardinal 37:43
know, we explained a lot. And then we sent more letters that then more explanation. And then I think we sent about three to five letters to them.

Scott Benner 37:55
Okay. They're still not paying. They're just saying no. And the bigger they said the the biggest problem is the cost of the insulin that we don't know the name of Is that right?

Sacha Cardinal 38:08
And all of the others, so well together. I think it's a no sorry, all together, like the slides and everything. It's $15,000.

Scott Benner 38:17
So for the year, the insulin and the sights together are like 15. Yep. You're gonna have to get a job. No, I'm just kidding. We're gonna have to figure out something to do. Right. So yeah, at the moment, you have a GoFundMe? But but that's, that's not the, that can't be the answer forever. So no, exactly. Yeah. Yeah. See, you have to find a way to explain to Canada that you need a different help. Like, if you had like a weird, something else that nobody else had? They would cover it, I would imagine. I mean, I don't know. I think so. Hell Canada's special. I'd say is that what? What what are some of the things you've guys have talked about to try to figure this out? Like, if you thought of moving to other countries, or what have you considered?

Sacha Cardinal 39:17
We haven't really thought about anything else. You know, we were talking about the GoFundMe and things like that. Gosh, and the doctor said, like, if that doesn't work, then we'll try and find something else. But right now, we don't really have a plan. No. That's

Scott Benner 39:38
that's not fun. So do you feel like this is something that's going to get worked out? Or what's your level of hope for this? 5050 Yeah, you think maybe they'll help you and maybe they won't, but you don't have any reason to think one way or the other? Yeah, exactly. Gotcha. Wow. Well, I mean, I'll make sure people know about the GoFundMe for certain here. But I just feel like the bigger thing to do is to find someone who knows how to how to get inside of Health Canada and make people listen. And as crazy as it sounds, I might know somebody. So I'm gonna ask that person when I get done talking to you today, and see if they have any suggestions for you. They've had a little bit of luck getting coverage for CGM in Manitoba. And so they I think they know how to maybe talk to people or move them a little bit. And I'm wondering if they wouldn't have some suggestions for you. So I know of course, it's actually strange as we're talking about it. I think on Friday, this week, the episode goes up with Trevor about, about what they did in Manitoba. I'm actually gonna look real quick. I said real quick. And then my internet slow down. Yes. On the ninth. I'll put up an episode called Manitoba Strikes Back. So Oh, wow. Yeah. So and there's a pretty compelling blog post that he wrote about how to how to make change that I'll make sure you have to. Okay, so is there? I mean, is there anything that you would want people to know about this or anything that I haven't thought to ask you?

Unknown Speaker 41:37
Um, no, my thing that was we did all at the same. Yeah, we did a good job. Yeah. You're really?

Scott Benner 41:48
You're brave for doing this and talking about it. You're all your friends? No, I guess it made it to the newspaper. Right. So everybody knows. Yeah, we did. What was it weird to be like, like, famous like that?

Sacha Cardinal 42:04
Um, it was, especially at the beginning, because I also got hospitalized for four months. And then starting to get messages from my friends like asking where I was, and things like that. So I was like, Oh, well, I guess. Now it's time to tell them that I'm actually not doing as great as they think.

Scott Benner 42:25
Oh, I see. You're keeping a pretty private for a while. Yeah. When you're in the hospital, how were they giving you insulin in the hospital?

Sacha Cardinal 42:36
They weren't giving it through IV. So into my veins so that I wouldn't react. And was that working? Well?

Unknown Speaker 42:44
Oh, yeah, it

Scott Benner 42:44
was actually that's how they got my numbers now. At first. What, um, what is it like being in the hospital for four months? Um, as stupid as it sounded, was exhausted. exhausting. Okay. Was it good? Tell me why. Sorry. That's, I was gonna say, Tell me why. But it sounds like a fight broke out about a baguette in the background. Yeah, my mom and my brother are playing. But what was exhausting about it? Um, well, especially with COVID. Right now, you can't really see anyone inside or outside, you can't go out you can't do anything. And then being sitted in a bed all day long, and not being able to move around because you have this big pole following you everywhere. Yeah. made it even harder. You tried to do school while you were there? Yeah, I actually didn't really have a choice. So I wouldn't be graduating. didn't have a choice. I would think you might get a pass. Maybe. Maybe they'd be hoping for one. But they didn't. Well, you still need to learn. I'm sure you learn some very important things while you're in there. I feel more over there. I could be a nurse now. You learn how to be a nurse while you're at the hospital. Like after a while you're like I see how this goes. I could do this. That is really super interesting. Um, well, I'm happy that you have an answer that is, you know, health wise, like forget the rest of the stupid stuff for a second. health wise. It is a pretty exciting time for you must feel like you have a brand new life. Yeah. Good for you. That's exciting. Um, do you have a website or is it just the GoFundMe?

Unknown Speaker 44:37
I just okay.

Scott Benner 44:41
I don't know a lot about GoFundMe. But I'm going to go to it for a second and hit search. And I imagine if I type in your name, sa si ha. And then do I need your last name? I'm not sure I haven't went on it in a while. Well, I'm gonna look on a second. I typed in your name and it didn't come up with you. That's not a good sign. Is your mom there? Are she going your brother? She's still with my brother. She like she beat him up or what do you think is happening right now? I really don't know. How old How old is he? He's 20 Oh, I see. Yeah, yeah, like Yeah. Alright, so I'm gonna your mom's I mean, I'll get a link or something. And I'll put it in the show notes of the podcast so people can find it. Okay. Thank you. Yeah, of course. I really appreciate you doing this. It was nice of you to come on and tell me about this is really like such a rarity that it's kind of crazy. I know. It's your life. So it doesn't feel that odd but it's very strange to hear. So no, thank you for having me. No, it's my pleasure. Well, how about that, huh? allergic the insulin and have is type one diabetes. That is as bad as frightening as it gets for me. I don't know about you. If you'd like to help support Sasha, she has a GoFundMe and I'll tell you how to get to it at the very end. For now, thanks so much for listening. Thanks for considering going to the T one D exchange and joining the registry at T one d exchange.org. forward slash juice box. For those of you who became members of the show or bought me a cup of coffee, thank you so much. Buy me a coffee.com forward slash juice box.

We'll put a link to Sasha's GoFundMe right here in the show notes and a Juicebox Podcast calm on the episode page for this episode. Her name is spelled s AC ha that will help you the title of her GoFundMe is help Sasha have a normal life without worries. There's a picture of her in her hospital bed. When you get there, you'll see it. Or you can go to go fund dot m e forward slash d f zero c a six A B, but it might be easier to get the link for my website and click on it. Help Sasha have a normal life without worries. If you're interested head over and take a look. Thank you so much for listening to this episode of the Juicebox Podcast. I'll be back soon with more. Until then, I hope you have a great day.


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#503 Manitoba Strikes Back

Scott Benner

Don't mess with Trevor.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome to Episode 503 of the Juicebox Podcast. This episode comes to you directly from the great white north. And in a second, I'll tell you what it's all about.

Trevor and his family live in Manitoba. And they got very involved in politics, and fighting for people with type one interesting story about making change. And if you're looking to make change of your own somewhere in your own life, is a heck of a blueprint in here. On top of that, Trevor wrote a great blog post about how they did what they did, which you'll find out about in a second, and I will link in the podcast show notes. It'll also be available at Juicebox podcast.com. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, please always consult a physician before making any changes to your healthcare plan, or becoming bold with insulin.

I wonder if anyone listening to this remembers Bob and Doug McKenzie. That has nothing to do with today's episode. But I said the great white North earlier than it made me wonder. And if you know what I'm talking about. Anyway, here's Trevor. This episode of The Juicebox Podcast is sponsored by Dexcom, makers of the Dexcom g six continuous glucose monitor, please learn more about the dexcom@dexcom.com forward slash juice box. The episode is also sponsored by Omni pod, and you may be eligible right now to get a free 30 day trial of the Omni pod dash that is using an insulin pump for free for 30 days, run over to Omni pod.com forward slash juice box find out if you're eligible. And I'd like to thank some members of the Juicebox Podcast recently in an episode I described that there is now a buy me a coffee campaign for the podcast. It's buy me a coffee.com forward slash juice box. It's a place you can go and throw in a couple of dollars. We're even by our membership. The money just goes to me just money I'll use to pay my bills and support the show. And, you know, I explained it in other episodes or people who were looking to do some more. A number of them reached out to me. We ended up doing this. And much to my surprise, somebody actually went and did it, which was was really heartwarming and touching honestly. But anyway, when you join and become a member, I say your name. So thank you very much, Marilyn, Allison, Larissa, Melissa, Leah, blue, Julie, Grace, Daniel, Jennifer, and Jen that it was very kind of you to support the show in this way. And I appreciate it. Ladies and gentlemen, people who are sending me money, yay. Anyway, the podcast is ad supported. It is my goal forever to keep it free for you to listen to. This has nothing to do with that. Don't think that I'm moving towards something else? I am not. I am definitely not as long as I can cover this podcast and my costs. With advertisements, I absolutely Well, this pod cast should be free for everyone who wants it. And it is part of my fight to keep it that way. This is just a thing that incredibly kind people have done. And I thank them. Alright, let's get to the episode. So I can stop being uncomfortable. Because anyway, this is a nice thing that people did. I don't think it's something I would have done on my own. But I appreciate the support very much. Here's Trevor.

Trevor 3:59
I'm Trevor. I'm the parent of 10 year olds with Type One Diabetes. We live on a small farm in Manitoba, Canada. It's the traditional territory treaty, one territory, the the original lands of the Anishinaabe, a. Cree, Oji, Cree, Denny, Dakota peoples, and the traditional homeland of the maytee people. You know, Trevor, if you ever want to context, if

Scott Benner 4:31
you want to talk about diabetes stuff, you shouldn't leave with something like that.

Trevor 4:36
Um, it's, I guess it's, it's something that we're trying to do more in Canada, no matter what we're talking about, to just give some context to the place where we are. So a lot of people are doing this now. In in their introductions, oh, and also my pronouns are he and him?

Scott Benner 4:58
Well, here's something that you're not going to I'm saying that I think is super important. You look like you're 12. And I can't believe you have a child.

Unknown Speaker 5:07
I don't mean that.

Scott Benner 5:09
There's no way you're 30. Like if you said to me right now, Scott, I'm 18. And I'm just getting going in life. I'd be like, yeah, right on, let's talk. You would have never, I would never think that it's just a, it's hilarious, but it's great. When you're older. You'll be thrilled about it. Trust me.

Trevor 5:26
I guess I don't know. Yeah, I'm waiting for that. When you're 50 match up.

Scott Benner 5:32
That's a long time to pay you back. But when you're like, 5055 years old, and people are like, Oh, my God, Trevor looks is 40. Right? You'll be like, Yes, I definitely 40 you just go along with it. you nod your head and that'll be that. Yeah, there you go. I'll pay you back soon. Well, that's very nice. Tell me a little bit. You said your son, right. Yeah. How old was he when he was diagnosed?

Trevor 5:53
He was eight. I think in some ways, we had a really typical diagnosis story. Nothing like DK on a plane. was incredible. I couldn't believe that story that that was amazing. But yeah, here in

Scott Benner 6:11
I'm sorry. I should have been here. When I was recording it. My heart started beating. I got all sweaty and clammy. And I was like, Oh my god, it was like, you know, and you're, like watching Titanic. And you're like, yeah, you as I was listening. I know this boats gonna sink. But I'm still really like, invested. And I was I was just listening and so invested in what she was saying. And, and yet, I'm like, I know the child's fine. I know. It's years later, you know, all that stuff. So anyway, I'm sorry. Let's get worse. I

Trevor 6:40
wish that she could have remembered where in Canada she had landed. I was just so curious to wonder like, well, which hospital was that?

Scott Benner 6:49
wasn't an interesting that it was so such a harried experience that she was? Yeah, literally in a place. And she didn't know where she was. And it didn't, right. That's fascinating. Yeah, really. Anyway, a couple years ago.

Trevor 7:02
Yeah, he, I mean, he had all those typical signs, like, was so thirsty, and really tired and super hungry and peeing a lot. And we tried to get an appointment with our nurse practitioner, and she was on vacation, and we got an appointment, that would have been like two months out or something. And so again, my my husband took him to a walk in clinic, and the walk in clinic doctor there completely missed the diagnosis, and said, Well, you know, there's been this virus going around. And a lot of kids come in looking like this. And and, I mean, the doctor, at least did want to do bloodwork and did ask, Is there any diabetes in your family, which there wasn't. But the the appointment was on a Saturday, and it was the start of a long weekend, and all the labs were closed already. So and I think I think we had a bit of a false sense of reassurance, having seen a doctor who didn't say, you know, rush this child to the emergency room, right? We waited out that weekend. And, and then my husband took him to the lab on Tuesday when the lab opened up again. And, and took him to have his blood work drawn, and brought him back home. And then he went to work. And I just, I looked at our son sitting on the couch. And I could see his breathing was different. And at that point, I was like, Okay, this is just terrible and scary. And I have to take him in right now. Like then I knew we can't, we can't wait for lab results. Like we just have to take him in.

Scott Benner 8:54
I have a question. And it's gonna be a little hindsight. But when the doctor says is there any history of diabetes in your family, you say no. If he would have said is there any history of autoimmune and started listening, listing them celiac thyroid like that, would he have hit on something?

Trevor 9:12
Yeah, yeah, my partner has thyroid.

Scott Benner 9:15
And that's something it's just you can't you just have to ask the bigger question because it doesn't always go you know, thyroid doesn't always be get thyroid, diabetes, etc, etc.

Trevor 9:26
Yeah, well in the the people at the emergency room, they like the endo there I think ended up phoning that walk in clinic doctor and saying like, Look, if you even suspect that it could maybe be diabetes in a child that's a pediatric emergency. You don't wait over the weekend for that.

Scott Benner 9:45
You don't you don't ask two people who aren't doctors hate you think this is diabetes? Yeah. I don't think so. Oh, okay. Good enough for me.

Trevor 9:56
Thanks. Yeah. So like when I took him to the hospital, the key He was in TK, a, the, the intake nurse knew exactly what it was. I didn't even get through listing all the symptoms. And she got out a blood meter and pricked his finger and the machine just read Hi.

Scott Benner 10:17
Oh, that's somebody who's seen it before, you know, know what to do right away. I will never forget. We we had basically diagnosed Arden prior to taking her to the hospital. And we told the intake nurse, she has diabetes. And she was like, and what's happening? And we went, Oh, no, no, I'm sorry. We're telling you, we just figured out she has diabetes, like it first it came off like, oh, we're here. Our daughter has a problem in the emergency room. We just want to let you know she has diabetes. But what we were trying to say was, hey, hey, look up. We just figured out she has diabetes, using Wow, very primitive internet back then, by the way. I wish I knew what website we landed on to figure that out back then. But I don't remember. So for you. So what happens next year, you're in the hospital DK a younger kid. I was just speaking to someone from Canada the other day, who did not have glowing things to say about the health care system. But did tell me that in an emergency situation you skip you know you don't. The waiting that apparently happens on other stuff doesn't happen, obviously with emergency stuff. So what happens afterwards? Yeah,

Trevor 11:25
actually, that was what I was about to say. Like we didn't even see the waiting room. We just went right in and the the ER nurses were really great. I will never forget them. Their names were Rico and Nico. Those were two of the nurses that we had. They, they had to struggle to get an IV into him because he was so dehydrated already by that point. So that was pretty rough. But he was also feeling so awful. That he didn't, he didn't complain, he didn't fight the needles going into his arms.

Scott Benner 12:01
That's a sad remembrance that you're that somebody was so sick, that stuff that would normally make you go Whoa, what are we doing right now? You're just like, whatever doesn't matter. You know? Yeah, fight back. Oh, my gosh, hey, Rico and Nico. Did you go to a hospital run by the Disney Channel? That's amazing.

Trevor 12:18
Yeah, right. And I also one, one thing one of them told me that I'll never forget. And, and that I think really affected my whole outlook was, he said, this is really overwhelming right now. But within a few months, you're going to be the expert on this for your child, you will know more than any nurse or doctor because you're going to be living it and you'll know what to do. And at the time, I thought like, That's impossible. I'm not gonna know more, more than the endocrinologist or whatever, you know, but but then you get in that situation and and you realize pretty quickly Yeah, we live with this every day.

Scott Benner 13:01
That's a loving thing to say, because it's not a great in the moment message, but it is the right message, you know, to me, like, you know, because I could see you having the exact response that you had or like looking at, I'm like, wait, what is this person talking about here? Like, I'm never gonna know more than a doctor about this like, but just that that's something you look back on two, three weeks, I would imagine a month later and you think, Okay, well, the person told me, we're going to gain knowledge and, and soon we're really gonna have this and I would think of that as comforting moving forward.

Trevor 13:31
Yeah, it was an it was a really busy time in our lives. I was about to run for election in, in our country's next federal election, actually, my nomination meeting happened 10 days after our son's diagnosis. So that was, that was a time of a lot of learning for us to try to run our first ever election campaign is that was a huge, huge deal. And when the endo was like, well, you're going back to school now. Like you're gonna learn diabetes for the next three days. for eight hours every day, it's like, Whoa, do I have to do this right now? It just it seemed it seemed like a lot and I didn't know anything about it. I didn't you know,

Scott Benner 14:24
what did you do? Did you put something aside or did you balance the whole thing?

Trevor 14:29
Um, we just did everything. We somehow did it everything I looking back I still I have no idea how we did it. are really really kind friend of ours who has a child with type one who was diagnosed as an infant. She came to see us in the hospital. This was back before COVID when people could actually visit people in the hospital. And she brought she brought a bag of coffee as well as a food scale. And she showed us how she was watching her kids blood sugar's on on their CGM. And actually they were looping. And so she told us about loop and all that stuff. And the bag of coffee really clued me and I was like, oh, okay, like, there's something about this is going to make it so I don't get to sleep anymore.

Scott Benner 15:25
I love that idea. I thought they would just bring you hammered hit yourself in the head with a seat, I'll have to have to have to experience the whole thing in exact reality. Well,

Trevor 15:34
she she was really great because she also said, Don't leave the hospital without a prescription for a CGM. And that was fantastic advice. And it actually it took a fair bit of fighting to get that because we what we were going to find out is that our clinic here is very old school. Like I always I get a kick out of it, when when I listened to an episode, and you're talking to an older person or someone who was diagnosed, you know, 20 years ago or something, and, and you you'll say something like, Oh, so was that back in the day of NPH. And in Toronto, insulin or something. And I'm like, yeah, we still use that now. Here in Manitoba. I'll tell you right now we have a big pile of it over here for using it up, right. And that's still how they'll start people off just they start every child here on NPH. Insulin, and it's in part because of the school system. Because we don't have any nurses in the schools, and school staff are prohibited from helping children with their insulin. They're also prohibited from giving glucagon. So you're really you're on your own. And, of course, NPH it's an intermediate acting insulin, that peaks somewhere between six and 12 hours after it's given in, you're supposed to somehow use that to cover their lunchtime carbs.

Scott Benner 17:05
Trevor, I have to tell you that more and more people coming on to the podcast from Canada, and it, it ruins the shine that I think about with Canada every it's such an odd idea that I mean, we're going to give somebody a medication that is considered to be, you know, from another era, because we don't want to put a nurse in the school.

Trevor 17:30
It is such a huge problem. Like our our health care system will pay for a lot of things. It will pay for you to go into DK twice a month and be hospitalized twice a month for as many times as that has to happen. But it won't pay for for a nurse in the school. It won't pay for a CGM. Yeah, really interesting. Yeah, yeah. Because we, you know, we have health care, but we don't have we don't really have a pharmacare system. Right. So there's, there's a lot of problems.

Scott Benner 18:06
But it's such a constant. I mean, that's such an I know there are a lot of problems in the room. And they're not all easy to fix. But this one's right there. It's obvious, right? Like it's, you can explain it to somebody who doesn't understand it in five minutes. They'd say, Oh, I think we're doing that wrong.

Trevor 18:20
Yes. Yeah, exactly. Exactly. And, and we've been a group of us have been working really hard trying to get this changed here. And it's it's incredible how difficult it has been. What I heard one person say is fighting so hard for never enough.

Scott Benner 18:42
That's a good point. Yeah. You're never really getting even when you when you don't get what you need. You get a concession.

Trevor 18:49
Right. Yeah, I mean, when when we started working on this, our province had no coverage for CGM for anybody. And, and after months and months of putting pretty intense pressure on the government and getting a lot of stuff in the media. In the in the recent budget announcement, they announced coverage of CGM and insulin pumps up to age 25. And this after 25 you just just do a better job on your own.

Scott Benner 19:21
What is that Manitoba? That's where you got that done? Yeah. Tell me how, who spearheaded that? Was it you and or somebody else and how do you how did you pull together? Kind of a grassroots fight like that?

Trevor 19:35
It was a whole group of us. I think a lot of people have been trying for a long time. So it wasn't any one person doing it alone. But I think it was the coordination this time that made it kind of different. I think a lot of people have felt very isolated and lonely, having their battles kind of one person at a time. Like there's so much to battle for I mean, we had to, we had to actually fight to get off of NPH. Even that was a fight, even though I could drive to my kids school every day and give him insulin every day for lunchtime, and I said that I was willing to do that. But that was a fight to, to convince them to let us make that change. So you're, you know, you're fighting with the clinic, and you're, you're fighting with the government and, and it's all it just feels like too much if you're doing it alone. But when the when the pandemic started, in our private local Facebook group, there were just so many posts from people struggling where it had always been hard, like this province had some of the worst worst diabetes coverage in the country before and, and then with people losing their private health insurance for what little coverage they did have and losing their income. It, it just got so bad. And I convinced a couple of people to participate in a news interview for CBC. Okay. And finally, when a couple of people were actually willing to talk about it publicly, then a whole bunch of other people saw that it was not just them alone. And and then suddenly, it was like the floodgates opened. And we set up this public Facebook page where people were sharing their stories. And people started out kind of sharing more privately, anonymously. And then the more that people shared, the more confident everybody seemed to become, I think, you know,

Scott Benner 21:47
it's funny, this is not related to doing anything good. But somebody's got it in their head to mess with me, during the pandemic, and I said to my wife, I was like, this person better stop, because I have a ton of free time right now. I'd be happy to get into this just to give me something to do. And isn't it interesting, too. And I want to understand, like you said a little bit, but I do want to share a little more deeply how you got some success. But I think that the it's not a misdemeanor, I guess it is the mistake, the mistake some people make when they're fighting against something like this, is that they think they're fighting for right versus wrong. They think that they're going to hold up, look, this is right, this is sensible, you're in charge of helping us see that this is sensible, make it make sense. But that's not really the path you need, the path you need is take the person who makes sense. And I know this is terrible, who's in power, and show them how helping you will help them. And when you do that, you get things done. But you know, people don't do things for the right reasons. They do things, sadly, most of the time to move themselves along. And you know what I mean?

Trevor 22:58
Yeah. Is that Yeah, we we have a government right now that it's a it's a conservative government, it's very interested in saving money. So in that budget announcement, almost everything else that was announced was cuts. Yeah. And and people really applauded Oh, wow, you got coverage up to age 25. Which, of course, we felt like Well, that's it's really not good enough. But people were excited that that we got something. But yeah, I think I think from from a citizens standpoint, you feel like, you know, I took half an hour and I, I wrote an email to my representative. And, and that was a big deal for me. And on their end, they don't even see that stuff. Like, I mean, those emails and phone calls, they go through assistance, and they don't even get passed to the representative until there's a certain volume, I think. And then if you also get something in the media, that's when there's suddenly you get noticed.

Scott Benner 24:06
And so May I take play devil's advocate for a second, as a person who runs a Facebook page. It's not apples to apples, but it's sort of is if you think about it, one Kook, you can't respond to, because then you get mired down in just like someone's crazy focus. But when you start hearing from 20 people, you go, oh, maybe this isn't a crazy thing. Maybe this is something people think. And it brings your attention to it, then you're like, Okay, like it part of me thinks that's terrible. That one person's voice doesn't make it to where they intend. And then then there's a part of me that goes, Well, it does make sense if I was on the other end of this and I addressed every single piece of email that came. I'd never get anything else accomplished.

Trevor 24:52
It's sure yeah, I mean, they're, they're busy and overwhelmed. It's the middle of a pandemic, but but also People have been trying to get this done for years. And there have been organized efforts before done by diabetes Canada and jdrf. Through their advocacy branches,

Scott Benner 25:11
do you think I don't mean to cut you off? But do you think that that's known from elected officials elected official? Like, couldn't that have been done while someone else was in that office? And then the new person might not even know anything about it, right?

Trevor 25:23
Yes, yeah. There's that too. Yeah. Yeah. Yeah. I mean, some of them there. There were some people that we, we found, I mean, we went back into Hansard is where you can look up everything that's ever been said in the legislature. And so we found some people that were like, hey, when back when you were in opposition, 20 years ago, you were talking about how, how the government needs to do more to support people with type one diabetes. And and now you're the health minister. What, like what's going on? Why is it so hard to reach you?

Scott Benner 26:01
because nothing's about you want to hear a little bit of my thoughts about things. Nothing's about what it seems like. It's about everything's about having power and keeping it or not having power and getting it. That that's how people's minds work.

Trevor 26:16
Yeah, one that's where it's so important to bring in the media, I think.

Scott Benner 26:22
Right? Yeah, to to shine, it's the bright light, you shine the bright light on you go look, we can't ignore this. You're doing a bad thing. We're gonna let people see if you don't do something. It's it. You're holding people's feet to the fire.

Trevor 26:34
Yeah, and we tried to always keep it really positive. We we've always just said like, this is about education, we're sure that once they really understand that they will support this because it's so obvious once you get it, you have to do something. So so we came up with with all sorts of stuff to get this into the media. The first one was the great manitoban fingerprick challenge, where we invited all our MLA is to pick their own fingers 10 times in one day, because that's what Manitoba pharmacare does cover right. It covers those finger pricks right but not a CGM and and we actually had a surprising number of MLA is take us up on that challenge. We got about 15 of them to do it and we asked them all to make videos of themselves doing it and post about it on social media and a lot of them said that they they learned a lot oh and this is where we could do your ad for the Contour Next One because when I we worked with a pharmacist actually my kids pharmacist he has a kid with Type One Diabetes and and so he supplied the fingerprick kits for the politicians and he like he was so happy to do this and and have them have that experience. But when we were talking about well which kind of which kind of finger picker should we give them like what brand are we going to go with and we both agreed that it would not be the Contour Next One because it has that option to try again with the same strip all the other ones don't right we were like it could be anything else but not that one.

Scott Benner 28:26
Trevor This is unprecedented for the show but the Contour Next One blood sugar blood glucose meter offers Second Chance test strips meaning if you go in one time get some blood but not enough you can actually go back get more without ruining the test strip or messing up the accuracy of the test contour next comm forward slash juicebox Okay, no, we'll go right back into that Trevor that was excellently done. So you didn't want to give them a good meter you wanted them to struggle a little bit?

Trevor 28:52
Well, no, I mean, we wanted to give them a good meter we did we did give them a good meter just not the Contour Next

Scott Benner 28:59
One that was gonna help them I see.

Trevor 29:02
Yeah, so So I mean, they they got a very nice modern meter just not not the Contour Next One. And yeah, there there was not a single politician who was actually able to complete the whole test without getting any error messages and without wasting a strip. So I think they all learned a lot from that experience from having to actually do it because a lot of people go through that.

Scott Benner 29:31
Yeah, that's excellent. That's a great idea. You know, it's funny when you first said you did the Manitoba finger prick challenge. I thought you just told a bunch of people in Manitoba to give the finger to the person government. That's exactly what I thought you were gonna say. We ran up to their buildings and gave them the thing. You can see that my um, my ideas probably would not have led to any success, but what did your ideas lead to?

Trevor 29:56
Well, the first thing was really great media coverage. which helped a lot. I think for for media, you kind of you need a reason why should they cover this right now, you can't just say, hey, look like these people with diabetes, they don't have good enough coverage. And it's always been like this, and we would like it to change now. But if you create an event, or I mean, I hate to say gimmick, but it's almost what it is, in a way, in a very fancy and educational media gimmick, then they will report on that. So each time we put together something like that, we put out a press release that we sent out to every local journalist. And so a lot of them right away, picked up the great manitoban fingerprick challenge. And they wrote about it before we even had a single MLA signed up to do it. So that that was pretty cool.

Scott Benner 30:58
I would love to have seen in the backroom, like in in the government side, like if they're just like, Oh, I saw that in the news. I guess we should not ignore these people. Like if it's just that base and simple. You know what I mean? Like you put it in their face. So they're like, well, we can't ignore this. We're hearing about it somewhere. It's almost like see three tweets. And you're like, Oh, it's a thing. It's not a thing. Yeah, three tweets. But yeah,

Trevor 31:18
I think it might be as simple as that. And then we just we kept going, we got a certain number of MLS that did the fingerprick challenge. And that was great. But But then we needed more reasons to get the media to cover it. So the next one that we did was the antique diabetes roadshow. And a group of us showed up outside the legislature, with with antiques from the same era as as fingerprints, right, from, you know, stuff from the 80s. And also also, we talked about NPH, insulin being so ancient. So we brought things like a typewriter, and just made a display outside the legislature. It's a real challenge with COVID. Like how he can't really do a protest, you can't, you can't have 1000s of people show up and show your strength in numbers. So you, you have to be really creative at that time, our gathering limit here with 1010 people in a public place. So we coordinated amongst ourselves and made sure to have no more than 10 people. Media don't count towards the public gathering limit.

Scott Benner 32:36
Which was very helpful. And funny, by the way, if 10s that Oh, yeah, right. What's 10? Unless you're in the media, then there could be 50 people here, you're fine.

Trevor 32:47
That's great. Yeah, yeah. Well, I mean, I guess because they cover, they follow protocols, right for them for themselves. And, and I think it's important for media to be able to cover events, ya know, they're very important part of our democracy. So I guess that's, that's why they don't count towards that limit. But But again, so we sent out a press release the day before, and then we sent it out, again, the morning of and all the media showed up to cover this event that we had. And then two weeks later, we did another one, we did The Amazing Race for diabetes coverage, and kind of had had this events sort of Amazing Race style. And so for that one, we invited MLA is to partner with someone with Type One Diabetes. And by that time, the gathering limit had changed to 25. So it was a little easier to coordinate that. And then so we had the MLS, doing things like, oh, at this table, you've got to count carbs, and you've got to figure out an insulin dose, and then we would kind of we would make it so the insulin dose would be really hard to do with pen needles. It would work out much easier with an insulin pump, but then it would be this opportunity to explain to them, like this is how this is so difficult. Yeah, on a daily basis. Without this, these are echnology

Scott Benner 34:12
really creative, brilliant ideas to show things to people. It's easy, because you have to make yourself you have to make yourself a human being in their eyes. Because I think that I think the one thing that happens in government, and I certainly don't want to be in charge of a government but if you put yourself in the shoes of someone who is not just thinking about people with diabetes, or people who have cancer, people can't afford their electric bills, but they're trying to think about not just I think you you want to hope that a leader is thinking about everyone.

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But I think they're thinking about the machine about keeping the country moving about being here in 50 years, 100 years about not having your democracy fall apart like that. They're thinking about bigger ideas. And it's hurtful, but kind of obvious to realize that on a person to person level, you really aren't the focus. Did you know what I mean by that? Like it's almost like with a mother ducklings walking along with eight or nine ducks and one of them breaks a leg. She looks back and goes alright, well now I got one less talk and I keep going like that's that, like keep the pack alive mentality that I can understand, but makes this kind of stuff. So difficult to fight against because and then I guess the only way to really do it is to stop and go look, we're not a pack of ducks. I'm a duckling with a broken leg, like see me and then help me because not only do you have the power to help me, but we are putting effort and money into things that are far less productive than what we could be doing.

Trevor 39:50
That's I mean, that's where like we also have to point out that the broken leg is actually really expensive for the whole system right and here in in Manitoba, we have the highest per capita rate of dialysis in the country. And of course the system pays for that and has to pay for that. Excellent.

Scott Benner 40:09
Excellent. Excellent that people have dialysis. Sorry. I got ahead of myself there. Yeah. What you point out to them is no, we can't walk away from this duckling. It's chained to us. And we're dragging it along with us. It's it's Yeah,

Trevor 40:22
right. Yeah. Well, one, one of the health ministers assistance actually was the inspiration for the next event that we planned because this was after the budget was announced. And, and we just we kept phoning. We kept phoning the health minister's office saying, Well, what about everybody over the age of 25? What about all those people? And And what about all the long term complications on how expensive they are? And in one of those complications, the health match one of those conversations, excuse me, the health ministers assistant said to me, Well, not everybody with Type One Diabetes ends up on dialysis, you know, and I think like he was trying to say this in the context of the cost savings analysis, right, but it comes down, one would be looking at, but he gave me this idea. I was like, Well, how many people with type one diabetes do end up on dialysis? How does that work out? And I was shocked to look up those statistics. It's, it's really scary, Trevor, it's

Scott Benner 41:30
almost as if that insulin that was being used in the 70s. And 80s, is not the best way to take care of type one diabetes. And that's shocking. Right? Oh, my God. Yeah, you must have been just knocked right over.

Trevor 41:46
I mean, like, when, when our son was diagnosed, that, that first day in the hospital, the endocrinologist talked to us about our private health insurance and what we had, and as a Canadian, that's really shocking. We're not used to that you're used to like, you go to the doctor, you never pay a cent. You just show your health card. And, and it was, it was incredible to, to have that conversation. And then, and then the diabetes educator said something like, you know, I think she wanted to impress upon us how serious this disease is, and the consequences of long term complications. And so she was talking about all that stuff. And I was like, Yeah, I am really scared of that. I, I have a friend my age, who is on dialysis, has had an amputation, and has lost his vision. And I don't want that to happen to my child. And I don't understand how this happened to my friend who's the same age as me. And she said, Well, that it doesn't really, it doesn't have to happen anymore with the technology that we have today. Great. And and then you go, okay, but that's not covered for everybody.

Scott Benner 43:07
And I know. You can't have it. But I'll tell you what, if you did, you'd be so much better off anyway. We'll see you later,

Trevor 43:15
right. Yeah, yeah. So I think I mean, it was some of those early conversations that also planted the seed for me that that eventually, once once our family personally got out of just struggling with how to cope with everything that that hopefully we could do something. The day that the day that we went to the clinic to get off of mph. I actually I drove through a terrible snowstorm to get there. But I was like, I am not going to miss this clinic appointment. This is not going to read delayed again, like we just have to get them off of NPH. So we drove through this horrible snowstorm. And because of the snowstorm nobody else had showed up at the clinic that day. So we were just kind of chatting and the diabetes educator told me a story about a child in foster care that she'd cared for. And that had seen another kid wearing a CGM and said to the educator, why can't I have that? Oh,

Scott Benner 44:25
geez, did they tell them why? Because you're poor, and you don't have parents and we don't care about you? Because that seems like how it feels. You know what I mean? Like really, really? I don't mean to be harsh. It just, it feels like what else would you say to them? And not that you would ever say that to a kid? Let me backtrack. But I mean, if that's the honest truth, then what do you say? You say, look, you don't rank here. And so you know, you don't get to have this stuff. It's it's just fascinating and like you said, but they are banking up money so that when that poor kid grows up, they can put them in the hospital for DK twice a month and get them on, you know, some sort of a kidney. dialysis? Really, it's just do you think do you? Do you have a feeling for why the thinking is that way?

Trevor 45:10
I think, um, I think governments like to think very short term. So even when you talk to them about long term complications and the money that they would save, if they covered the appropriate supplies and devices, I mean, even insulin, there are people in Canada who are rationing insulin, because they can't afford it. And I know, it's it's nothing like the problems that you have in the US, but it shouldn't be happening anywhere. But so they they think, well, that's, that's long term. And we want to save money. Now we want to, we want to say that we're being fiscally responsible, we want to cut taxes, we want to do all those great things. So one thing that we've we've started trying to talk to them about is understanding what it can mean with diabetes. When you say long term complications. If you're talking about retinopathy, it's not really that long. Like, I mean, I think it's something like 8% of people with type one diabetes, will start showing signs of retinopathy. Just three years after diagnosis. It's not that long.

Scott Benner 46:21
Yeah. Being well managed. Things are going to go downhill quickly.

Trevor 46:26
Yeah, yeah. So it's important, I think, because politicians don't they don't know what what you mean, when you just say long term. They're used to it. If they're used to thinking about infrastructure or something, then they're thinking 80 years. Right,

Scott Benner 46:42
right. Yeah, that bridge will start crumbling in 2093, we'll get to it. That Yeah. And by the way, they because they thinking because they're thinking about the money part of it, you really don't get thought of as a person, like, you're not a bridge, we can't just come along and fix you. Like, once your eyes don't work. You know,

Trevor 46:59
they don't work. You don't you don't get to like patch them back together again. And there are treatments, but they're not. They're not going to put your normal, there are treatments that are also very expensive, like the you know, the eye injections that they do, right? I finally found a source for that for the just how much it costs, and it's about $7,000 per injection per eye. And they're

Scott Benner 47:25
not ever you have to get a needle in your eyeball. So right. Can I just have a CGM, please?

Trevor 47:33
I know, right? Yeah. Yeah. So we I mean, we try to talk about all those things. But it's, it's there a lot of moving pieces there. Because even if you convince, say, your local politician, and the person is like, Yes, I get this, you need this. But I am not the health minister. I am not the civil service. And I am not the finance committee in Union to convince all of those people. So how did

Scott Benner 48:00
you like, how do you do that? Like and how big is Manitoba? Like, give it to me, like, pick a state in the United States? What does it measure up to like size wise?

Trevor 48:10
Well, Manitoba is not that big. I mean, we have about 1.3 5 million people here.

Scott Benner 48:16
But but but this is where you focus on and this is where you were able to make the change.

Trevor 48:21
Yeah, yeah. Because in Canada Health is it's provincial jurisdictions. So we focused on our own province here, where we live.

Scott Benner 48:33
So let me ask if you somehow ended up magically changing everyone's mind in that province. It's not like what you taught those people would have an opportunity to bleed out into a different province. Is that right?

Trevor 48:46
I think it could help. One, one thing that we did here was there while we were running this campaign, a couple of other provinces made commitments to improve their diabetes coverage. And then it became very clear that Manitoba was the worst in Canada. So that was another press release. No, nobody likes to be the worst in the whole country for something. So we kind of we did capitalize on that a little bit. But you just you have to work with every every different component, and you have to understand how changes can get made. So I mean, with if the Health Minister really cares about something and says, hey, look, I've been getting all these emails and phone calls from these diabetes people like what is going on? She will direct her staff to look into it. And and then the civil service experts will look at the studies and look at the research. And that's a whole nother problem that we have, which is they'll they'll only consider certain types of studies they prefer they prefer clinical trials. I guess they're What are they called? Like the double blinded kinds, right? They prefer that kind of review. They they don't prefer to look at what they call real world studies that are more retrospective. Yeah, they're harder. Yeah, so. So another thing that we did, like, we managed to get some meetings with the civil service as well. So then you're talking to clinical analysts, and you have to speak their language. So we were, we were looking at studies, and we were poking holes in our own governments, reviews of the technology we have in Canada, a body that is kind of more more federal, that's supposed to help to not have to duplicate the work so that each province one at a time doesn't have to look at all this stuff on its own. So so we were looking at the federal review of the technology and saying, like, Hey, you know, it was published in 2020. But when you actually go and look at what they say they're talking about, they're talking about other meta analysis of multiple studies. And when you go back and look at when those studies were published, some of them are from like, 2006. Well, which which version of Dexcom were we using in 2006? Yeah, like, yes, it was a lot more expensive back then. And much less accurate. And things have really changed. Now how about we look at a study where the data was actually collected in 2018, using a much more more recent version of a CGM, and look at those results. So we we did things like that, and the civil service, folks, they seem to be very appreciative, I think, for that sort of help, because they're, they're looking at new new drugs and devices all the time. And it's a lot of information to go through. And I think I mean, I think it's reasonable that if you have this federal body that has written a report, and someone's asking you, well, what about this CGM thing? And you go and you look at that federal report, and it says, not that great. Not sure if it's worth it? Well, yeah, I mean, what what decision Are you going to make, but if somebody can come and help you and say, Hey, like, these are the reasons why that federal review is not actually that strong. And why don't you look at this and this and this instead? It's easier for them to make a better decision, I think,

Scott Benner 52:44
yeah, I wonder if I wonder if there's not a way to think of it more like a marketing problem to like, could you, you know, if you were a CGM company, like, could you go into an area and just pick, I don't know, 50 or 100 people and put them on product, and not even help them with it, just put them on it, and then gathered their data for six months, and then gather 100 people's data that don't have the the ability to see their blood sugar for six months, and just see if you can say, look, this was beneficial here and give them a questionnaire about their stress, lifestyle and stuff like that. If that wouldn't be an easy way to turn to people and say, Look, this is what we found, as a matter of fact, for anybody listening in a company, that's a great commercial, you know what I mean? Like that would be key. Imagine a 62nd ad where you you saw that break down very quickly. You know, these 100 people did this, these 100 people didn't have it, here's the outcomes. After six months, everyone living with diabetes would understand that every endocrinologist would understand that.

Trevor 53:42
Well, that's that's been done. really mean nobody cares. Well, with the with the libri. In Europe, that was exactly what happened. But it was done on a on a huge scale, because they started to have federal coverage for those devices, right. And so what libri did was it looked at Okay, like in the year before people had this coverage, what was their rate of decay? And, and severe hypoglycemia? And in the year after, how did that change, when people got coverage, and the reduction in DK was about 50%. And it's looking at a huge sample size, it was like 70,000 people in France. And so this was the kind of thing that we were bringing to the civil service saying like, Look, look at this study. It's a it's a massive sample size. They've already done it over there. Like they just decided to have this coverage. Why wouldn't we want this here? And how can how can we ethically keep doing this to people when we know what a huge difference this technology makes? And and yet, after the budget, drop The age 25 cut off when we would go back and talk to the politicians like, why age 25? Why did you do this, they would still be talking about cost, which tells me that they they still don't fully understand the cost savings argument like even if they don't care about people's kidneys, even if they don't care about people's quality of life. If we can just talk about the dollars here, DK a and treating it in a hospital is really expensive. And that's a short term emergency,

Scott Benner 55:34
but it's the problem. Trying to put myself in their shoes is the problem that that money for DK is going to places they want the money to go to. I hate sure you don't I mean, I hate them boil it down. I hate to boil down people's health into such like cold ideas. But if I'm the politician am I sitting there going look, DK is much more expensive than putting somebody on a CGM. You're 100%. Right. But in column A, we're giving the money to the CGM company. And in column B, we're putting it into the hospital that hires doctors and nurses and people to clean the hospital. And we're keeping the machine moving this way.

Trevor 56:10
like Oh, sure, like it's I mean, yeah, I think just that it's a different pot of money can be a problem, because the people that run the drug plan, they look at the costs of the drug plan. And maybe they're not looking at the costs with associated with the hospitals. I mean, we also keep trying to point out to them, that right now, like this is an emergency, it's urgent. And now is not a good time to have people going to the hospital when it could be avoided. So if there's anything that we could do to keep people out of the hospital, that would be great. Like, actually, as of yesterday, Manitoba now has has the highest per capita rate in North America, of new COVID infections. And also yesterday, they transferred three ICU patients to a different province because the ice user full here,

Scott Benner 57:09
Trevor, maybe show up instead of trying to fix Manitoba and might be underwater. What are we talking about? Yeah, yeah, it's, it's pretty scary. Um, yeah. Well, I just, I mean, maybe you repurpose people. So instead of saying, look, we need you to get sick, because that's how nurses and doctors and hospitals get paid. Maybe you could turn nurses and doctors and hospitals in the people who showed you how to put on your CGM and how to read it and how to make better decisions. Like, you don't I mean, like, why is there? Yeah, it just listen. It's obvious, like worldwide problem, right? We attack problems after their problems, like being proactive is not anybody's strong suit.

Trevor 57:49
Right? Yeah. Yeah. Well, I mean, like, right now, we have a shortage of nurses, we obviously have a shortage of space in the hospitals. So I don't think that it. I don't think that anybody's even saying like, you know, that's how nurses and doctors get paid is by people going into DK. That's the I don't think that's really an argument here, though. I may be a little different from how it is in the US in that regard. But, yeah, I think those resources could be spent on training people on their insulin pumps, and yet teaching people how to use the CGM.

Scott Benner 58:30
Can you talk for a couple of minutes about the overall attitude that you guys used? When you're undertaking this? Because there are a number of, you know, patient advocacy, things going on all over the world. And every one of them is, is not just well intended, but needed. But some of them their messaging, you can you hear their messaging, and you just think that's not going to go anywhere. Like, no one's gonna listen to you when you're talking to them like that. And I and it's not even that the message isn't, isn't deserved. You know what I mean? Like, I'm not saying that, like, I'm on the side of the person saying the thing. I just think as a, as a person who's standing back watching it happen, I'm like, I don't think that's how conversations like this get anywhere. But how did you actually like so you did all these things. But they worked. And that's and what do you attribute that to?

Trevor 59:27
I think it was really the collective action and the coordination of so many people. So many people were writing to their MLS and emailing and phoning. And so it wasn't just a meeting with the health minister, but it was like every, every person in our group with type one diabetes or who is connected in some way to type one diabetes was trying to get a meeting with their own MLA and also phoning the health minister. So we we had many many meetings. With different MLS, and then when they're all hearing similar messaging about why this is so desperately needed, then I think when they do have those moments in caucus, and they're together, and one of them says, Hey, you know, I keep hearing from from people diabetes, it's like really a problem. And then somebody else chimes in Yeah, like, yeah, I, I've been hearing this too, right. And they, they all started to get education around it, we we've always tried to focus on the education aspect of it. And with each media event, we kind of chose a different topic to educate around. And there, there's so much it's like, it's almost endless, like you, as, as you know, very well, you can keep talking and talking about different aspects of diabetes. And we just kind of kept hoping that eventually, they would understand enough to want to take that action. And we also, we also focused specifically on members of the Finance Committee, because even when you've persuaded the civil service, and you've persuaded the health minister, then if the Health Minister eventually comes to the finance committee and says, look, I'd like to do this, but we don't have quite enough money for it. That's where it can die. It can die if the finance minister doesn't understand how important it is, for what I need to understand

Scott Benner 1:01:27
those when you come into those meetings. I mean, that's amazing. But you're not. I'm guessing, yelling. You're not saying Oh, you're like it's coming from like, you. Listen, I'm not trying to denigrate anybody. But you know what I'm talking about. Right? Yeah. Okay. So

Trevor 1:01:44
So yeah, no, I think I think we always approached it. And we continue to approach it from a perspective of they just don't quite understand yet. But they will, will understand.

Scott Benner 1:01:57
You don't make they're a monster trying to kill you. And you're defending yourself against this charging horde?

Trevor 1:02:04
No, no. And I think that positive attitude, really helped with our events. At each event that we hosted, we've managed to get people to attend from each political party, not just from the government side, and not just from the opposition, but all of them. We have three political parties here in Manitoba. So that that really speaks to you know, if if you've got politicians from all sides willing to be seen with you in public, that's a really good thing, like you want to, you want to aim for that to, to not to not be so abrasive that, that people are just going to be scared to actually be near you in public that the way this you don't want to, you don't want to do that, from what

Scott Benner 1:02:53
I could see from the outside and the way you guys handled this, and I realized it's a big effort. It's one of the great reasons I wanted to have you on because you, I mean, you didn't kill them with kindness, right? But you just you came at them. Constantly, intellectually, constantly, data constantly with, I know you have a problem to fix, here's how you can fix your problem and fix our problem. And it never felt contentious. And it never felt like I'm sure you were, you know, frustrated behind the scenes and everything. But in the moment at the events, or in any of your Ford messaging, it was always very positive. And I just think you don't I you know, like, Listen, somebody could be as wrong as wrong could be you running up to them and yelling, you're wrong. And I don't like you. And why do you hate me is not the first sentence that ends without and we worked it all out later. It just it doesn't go that afraid. You don't I mean, so. To me. Yeah.

Trevor 1:03:54
I mean, I think I guess we focused a lot on personal stories. When when we had meetings with MLS or with the health minister, we tended to open with personal stories. One of our members has a kid who experienced a lot of seizures before getting a CGM. And now seizures are no longer a regular part of this child's life, which is great. So she, Liz, you have to tell your seizure story in this meeting that we have coming up and she's like, yep, okay. All right. I'll do I'll do that again.

Scott Benner 1:04:34
One more time, just so we can get Manitoba squared away here. But, you know, I think that if you're obviously you're looking to expand it past the age of 25, which is clearly obvious, but I, you know, if I had, if I could make a wish for you, I would wish that that you'd go back to those people who you've already whose minds you've already changed and ask them to put a little effort into contacting an official in a different province and explaining to them what they've learned. Because maybe you could get that like spread effect that way. Because you've already got you've already built more warriors. And they're prepared. They know the whole story. And if they were just to call a colleague and say, Hey, give me 20 minutes, I want to explain something to you that I've figured out here. And just make you aware of it. But that would, to me that would, that would be how you how you make it spread across Canada? Yeah, seems obvious.

Trevor 1:05:32
Yeah, definitely. I think so. And I think also, I would love to see less of the burden of this placed on patients who are dealing with this chronic disease every day, which is already plenty to do. I would love to see more people who are not actually living with Type One Diabetes, trying to do what they can to help.

Scott Benner 1:05:56
Well, now that we're on Star Trek lined, man, I

Trevor 1:05:59
don't know, but you know what, some people did that for us here. There. There were phone calls made to our premier from other provinces. And I I'm sure that that really helped.

Scott Benner 1:06:11
No, I imagine what's an MLA I realized an hour into this isn't the time.

Trevor 1:06:17
That's a member of the Legislative Assembly here.

Scott Benner 1:06:20
I just assumed everybody heard government person when you said that.

Trevor 1:06:23
Yeah, yeah, totally government person. That's what it is. But you know, we haven't talked about our ridiculous insulin pump process at all yet.

Scott Benner 1:06:31
Well, can we make sure that we do? Yes. Can we end with that? Because I'm, I'm on such a strict time schedule today. So yeah, I'm not gonna, I'm not rushing you. But let's, uh, let's button up with that. So I, the best I can tell you is that my interactions with Canadians happen mostly, you know, over the internet. And I hear a lot about we can't get a pump. We can't talk somebody into something. That's not how we do things here. You know what I mean? Nobody wants to hear that. It's a lot of that old timey. Like, it just feels like you're managing diabetes in 1983. And yeah, and that's the direction you're getting. But what happens specifically with pumps?

Trevor 1:07:12
Yes. So here, it's, I think, again, it's one of the one of the most difficult parts of the country to get an insulin pump. And I haven't exactly been able to figure out the reasons for that. Maybe it's just because they don't want to pay for them for that many people. But again, I think they're spending a lot of resources on barriers. So for one thing, you have to have three a one C's in a row that are under 10%. And, and of course, they have to be at least two or three months apart. So if you're, if your kid has a flu, or just a really hard couple of months, and they get an A one, see that's 10.2% then they fail that and they have to start again from the beginning trying to get those three a one sees in a row. Under 10%. Yeah.

Scott Benner 1:08:05
So for clarity, you have to take something that you're not getting good direction at, you're getting kind of lousy insulin from and no help. You're struggling with it, which is why you're asking for the pump. But before you can have the pump, you have to prove that you can be good at it without the pump, which is the whole reason you're looking for the pump. Exactly. Ah, yeah, that's more gene. You know, I have to say, I think that pretty Prime Minister has me fooled. Like I see that big smiling face and I'm like, everything must be terrific up there. And then I imagine just, you know, Mounties riding polar bears. And I'm like, Canada, you know, and it sounds like maybe it's just like everywhere else.

Trevor 1:08:48
Yeah, there are some big challenges here. We have a really unique and special one in Manitoba. I haven't been able to find that this exists elsewhere, actually. And I would love if you've heard of this happening somewhere else, please let me know. But after you've got your third a one c under 10%, then you have to do a psych assessment to determine your insulin pump readiness. And the first part of that is his paper survey pages and pages of it. And I mean, when when we were trying to go through it, our kid was eight years old, and he couldn't even really like his reading level wasn't good enough to read some of those questions. And they were really bizarre. They were asking things like, if he was worried that his type one diabetes would affect his chances of getting married or his chances of getting a good job one day. The kid had to fill out the paperwork he was supposed to, but I mean he couldn't really so we can get with him one time

Scott Benner 1:09:58
in my early 20s I had the option to go to a girl's house to have sex, but I had to get gas first. And it seemed like too much work. So I didn't go. So I'm trying to imagine people at the end of their day, at the end of their week fighting with this diabetes had like, Oh, now I gotta fill out this giant survey full of questions that I, my eight year old couldn't possibly know the answer to your eight year olds not thinking about getting married. Are you kidding? Oh, my God, right? The gas station was not far from our house. I just want to be clear. I was like, we could do it Saturday. Beautiful girl, lovely person. I'm not saying anything about her. I'm just telling you, it's hard to at the end of a long work day, it's hard to it's hard to do more stuff. And then they

Trevor 1:10:51
imagine that being attached to whether or not you get this really expensive item that you're you're pretty desperate for. And so instead of answering those questions, honestly, which I mean, some of them may be relevant. I guess, like in the psych survey, instead of answering those Honestly, I think what you end up doing is saying to yourself, okay, what do I need to write down? That they will feel like is the right answer is I don't want to fail this and make it so my kid can't get a pump. Right, right.

Scott Benner 1:11:23
Oh, no. I mean, listen, that's just human nature. I had to take Arden to a doctor's appointment a number of weeks ago, having her wisdom teeth out. She just had to go in for a, you know, first look, and then handed a piece of paper, and it was a COVID thing. Now luckily, all the questions, you know, we could answer honestly. But I just thought to myself, if I went to all the trouble of driving here, and I didn't really think COVID was, you know, I was maybe on the fence about caring about it. Wouldn't I just lie here on this paper like this paper is not, it's not really a good way to get the truth out of me. And and then when that becomes the issue, to me, in my mind, I think what is just take the barrier away then like, why are you asking people questions about an answer? They want an insulin pump, they have diabetes, give it? What is your

Trevor 1:12:07
Yeah, what's your point? In in, in our case, our son was really struggling with needles and with eating food. He was at a point where he, you know, we would be like, Matthew, do you want an apple? and apples are one of his favorite foods? And he just go? No, cuz he didn't want the needle? Yeah.

Scott Benner 1:12:29
You're not asking if he wants an apple. You're asking if he wants a needle?

Trevor 1:12:32
Yeah, it was so sad to see that. And when when we realized how how long it would take us to get through this process. Because after the paper psych assessment, then there's an in person psych assessment. And then there's the clinic assessment. And then you can go on a waitlist to get an insulin pump. And then there's pump training classes. Like it's just it, there's so much ridiculousness, and when we realized that it would take us another year, and we were looking at our kid who wasn't eating normally, what we did was we went to North Dakota, and got him started on an insulin pump in like a day. Were you

Scott Benner 1:13:13
able to do that? Because your accent sounded similar, and they thought you were from?

Trevor 1:13:19
No, I mean, we were able to do that because we have the financial privilege that our family can do that i right now, I understand. But a lot of people can't obviously, right. So

Scott Benner 1:13:31
yeah, I was gonna say while you were explaining this, this is the three a one season a row followed by the paperwork, followed by the in person followed by this. I was like, this is a year, year and a half we're talking about here if if it goes right, yeah, yeah, if you stumble, you imagine you get two in a row. And on the third one, your ad agency doesn't come back. Right. You're now nine months into you get to start over again.

Trevor 1:13:52
Yeah, I mean, I know a small child that that happened to share in it. It took them almost three years to get a pump and they like that family was trying so hard to get through all those hoops and they just couldn't do it. Yeah, I'm gonna

Scott Benner 1:14:07
go out on a limb and and use a word that might people might not think fits here, but that's an atrocity. Like, that is a that is a that is a human rights violation to treat somebody

Trevor 1:14:17
i i agree. Yeah, I think that's that's the right word for it. That's just and and I mean, we have to go through a psych assessment, where it's like, yeah, I mean, this diabetes stuff and heating needles. It is it is giving me some, some mental health challenges here, like things are not okay. But for some reason, I have to pass this mental health assessment first, to get the thing that could help improve my mental health

Scott Benner 1:14:49
and not for nothing. What does any of that have to do with getting an insulin pump? Can you see one relation? Yeah, I don't see one relation to what you just explained. And an insulin pump. I mean, if you will make me go through that to get a machine gun, I might be like, Alright, well, that makes sense, you know, like or something but but to get an insulin pump, like a thing that's just going to, you know, give me my base is what it makes me think is, is that this is this old thinking again, like I've had enough older people who have had diabetes, like for decades tell me this, that pumps used to be considered a thing that you would put on somebody if they were just ignoring their care, because then at least they'd get their Basal insulin from the pump. So you were thought of as a problem if you need a pump at a certain part in history of insulin pumps, and maybe they're just stuck in that idea.

Trevor 1:15:44
I don't think that's quite it here. Because, I mean, if that was the case, then the kids with those super high Awan C's, they would be put on an insulin pump, right? But that's not what they're doing. Well, no only but the best clients on it.

Scott Benner 1:15:59
I'm saying it's letter, the letter of the idea. It would be that way. But I'm saying maybe over the years, it's morphed. Maybe it's just the remembrance that proper, you know, quote, unquote, problem. People got insulin pumps. So we have to prove you're not a problem before you got it. Like, I don't know, I see. Like it maybe you know how some things get commingled after decades. And you don't know why the hell you're doing what you're doing at this point. Like, if you pulled a person aside out of this and said, Why are you doing this? I know that I know, I would bet everything I had, they wouldn't have an answer. They might not know why they're doing it.

Trevor 1:16:32
It reminds me a little bit of psych assessments for transgender people wanting to transition. I am trans myself, okay. And when I when I wanted to transition and wanted access to medical transition, I had to pass a psych assessment. And at that time, what people would do is we like we would get together in our support group at at our local center for that, and people would talk about like, Okay, what do I need to say to the psychologist? And if I say this, will that set me back a year? If I say that, will she just wave me on? Like, how does this work? And so you just you try to figure it out? And and it seemed like what they wanted to check for was, does this person have some sort of mental health issue going on? That That means, you know, we should address that first, before letting them transition, not acknowledging the fact that your depression or your struggles, could could very directly be related to the fact that you haven't been able to transition? Right? let's admit, it could get a lot better. Once you do,

Scott Benner 1:17:52
I could understand that question coming into a person's mind who's never considered transitioning? Like I could see a person having that thought, I can also see that they, I could also see that there might be bad actors who just think, well, I don't agree with this. So let's prove that they shouldn't be able to do it. Like I can see bad actors and good actors and the same thing. But here's the end of it. I have to bleep this out letter later, Trevor, but who cares what you want to do? Like just like, Who cares? like and what other walk of life? are we stopping people from doing what they want to do? I see people pull out teeth, that they that are completely healthy, because they want their smile to look differently. We're gonna make them go through a psych evaluation for that, like, it's, it's your life.

Trevor 1:18:35
Yeah. Right. And I mean, that's like, it's been changing for trans people, a lot of clinics have been changing more to an informed choice kind of model that's like, Do you understand what this medication is going to do that you want to take? Yes. Okay. Like you can make that choice. And, and so I think, too, you know, to tell a person who's having a lot of trouble with needles, that they need to have a psych assessment first and discuss their trouble with needles before he'll let them have an insulin pump. So they don't have to deal with so many needles, it, it just doesn't make any sense.

Scott Benner 1:19:11
You want to sit next to that person every day. And every time they put something in their mouth jam in the arm or the needle.

Trevor 1:19:18
Right? Yeah. And I think that's that's another point. Like, they don't have that experience. They don't get it. No, I know. We, when right when my kid was diagnosed, we were offered an appointment with one of the psychologists just to talk about things which I think like that's great to have that support. It is a it's a big thing to deal with. And that's really nice that a clinic would have a psychologist to talk to right. But unfortunately, the psychologist just didn't seem to know anything about living with diabetes. So one of the things that my kid was talking about in this appointment was how awful he feels when his blood sugar is really high and Just the terrible physical feeling of that and, and that it also made him feel really angry. And he actually described in this appointment that he did something kind of inexplicable and really mean to his sister on a day when he was having a super high blood sugar. And it was it was just soon after diagnosis. The psychologist said, Well, I thought that wouldn't have anything to do with your with your high blood sugar at the time.

Scott Benner 1:20:27
It just all person online, their kid broke their arm. And they started explaining to the doctor that you know, they had to use more insulin because that's how they knew the arm was broken. Because their insulin needs went up, they realized there's something wrong with the arm, the doctor, and this is going to fry your mind, Trevor, who had Type One Diabetes told them that that would not have an impact on your insulin use.

Trevor 1:20:50
I think I saw what I can't understand is like, how could a doctor who has type one diabetes not have ever seen that in in themselves?

Scott Benner 1:21:00
So let me move the microphone a little farther away from my mouth for a second because everybody's idiot. That's why Okay, so that you you've a bunch of people, we're all trying to pretend we're something and doctors do the like, I know everything you can't like I'm infallible like and I get why they need to feel that way. I almost do understand it. But But the real message isn't fixed doctors. The message is control your own life. Like I have an I have to go in a minute. But I have a horrible feeling thinking of you sitting in a doctor's office, while your kid is explaining how they feel with a high blood sugar and how you must feel in that situation. Like

Trevor 1:21:40
Yeah, like, well, and what I did after that appointment is I was I just decided, you know what I think I want to hear from adults who live with this disease. And after that point, I just focused on that, like I read books written by people who actually have type one diabetes. And I that's also what I appreciate so much about the podcast is listening to people's actual experiences. Because when you live with it, you know, like you know how you're feeling and you can look at your CGM and take out the medical

Scott Benner 1:22:13
middleman is what you end up doing. Yeah, so that the message doesn't get truncated on the way to you. Or it completely blocked. I mean, if I start talking about how upsetting it is, for how many people I hear back from or like, found the podcast, listen to it, put things into progress, I really started to understand it started to work out went into the doctor's office super excited a once he was six got yelled at. That's terrible, we'll get

Trevor 1:22:42
that so sad. And I think I mean, for, for my kids, I've tried to make it a learning experience for them. To understand that, you know, we we went to this clinic in Manitoba, it's the only clinic for children with type one diabetes, and it really wasn't working out. And so it's okay to go somewhere else and find somebody else. Like, you don't have to stick with that. That one doctor. I mean, here, it's, it's really hard because there isn't another local choice. But I am glad that at least for my super privileged kids, they were able to see, oh, well, we can just go see a different doctor. And that person does click with us does does make sense. She was so happy for my kid to get an insulin pump when he needed one. And she's super supportive. And, and she's very happy with his a one C and timing range and all that stuff. And so that's the right choice for us. And I think people have to realize, you know, any doctor can can be wrong about stuff. They're a human being, and maybe they haven't kept up to date the way that they should or didn't learn what they should have in school, or whatever it is,

Scott Benner 1:23:58
you have to trust your gut, because you might live in Manitoba, your own version of Manitoba somewhere too. And as Trevor told you, 45 minutes ago, a lot of people who live there who have diabetes end up in renal failure. And so, you know, take care of yourself, you have to like you can't just sit there going, Oh, the guy said it's alright. You know, like it just if you don't think it's all right, it's probably not all right, if you don't have the answers, go find them somewhere else but do not keep going back to a person who tells you uh, you know, who's you know, sticking their finger up your nose and smacking the side of the head and going on being nice to you? No, you're not.

Trevor 1:24:38
I mean, like, I get it, it can be very hard to do that. And I don't blame somebody who of course maybe hasn't felt confident to do that. I'm like your your kid is diagnosed, they nearly died and the people in the hospital saved. At that point were perceived yourself if you were diagnosed as an adult in decay and so it's it can be hard to kind of move by Their initial advice and figure out what else there could be out there.

Scott Benner 1:25:06
It's a difficult it's a difficult transition to make from. This is the person who saved us to somebody just like that person seems to not understand what we're going through. Trevor, I hate to do this, but I have to go. I'm having a great time. And I would definitely keep talking. But I am literally going to say goodbye to you and then take a drink of water and record something else.

Trevor 1:25:29
This has been awesome. I really love talking to you. Thanks so much for having me on the podcast. It's my pleasure. I

Scott Benner 1:25:35
quite enjoyed it as well.

How about Trevor? Just getting into the fight swinging with both hands, huh? Really amazing story. Don't miss there. Don't miss Trevor's blog post Juicebox Podcast calm either. If you're listening on day one, two or three, it's probably right on the front page right now. Just head over there. And take a look. Thanks also to Dexcom Did I say thanks to Trevor? Because then thanks also Anyway, thanks the Dexcom makers of the GS six continuous glucose monitor and Omni pod makers of the Omni pod dash tubeless insulin pump find out more dexcom.com forward slash juice box head over and get started right now. And see if you're eligible for that free 30 day trial the dash add on the pod comm forward slash juice box

thank you so much for listening. Thanks for sharing the show a few bought me a cup of coffee at buy me a coffee calm. I mean, thank you, thank you, thank you, we're actually going to be new members that do that will get their name mentioned when they start their membership. There are some people who bought a level of membership who will get mentioned at every show. Have was um, I couldn't believe that anybody did that. But anyway, no matter how you choose to support the show, I am very grateful. I'll talk to you soon. I'll be back with another episode of the podcast before you know it. Couple sleeps and there'll be a new one waiting right there for you in your podcast that you are subscribed in your podcast app right please, please subscribe in your pockets that I say I should say something like if I lived in Canada now.


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#502 Communication and Relationships with Kimberly Groves, PsyD

Scott Benner

Kimberly Groves, PsyD chats with Scott about communication and relationships. Kim is also an adult who has type 1 diabetes.

Learn more about Kim's support group 856-220-9672

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hey, how's everybody doing? Welcome to Episode 502 of the Juicebox Podcast. I'm your host

Welcome back, everyone. On today's episode I'm going to be speaking with Kim Kim is a therapist. And she and I spend a lot of time today talking about relationships and communication was fun. I liked it. Good talk. Good talk. I should call this one good talk with Kim. But I call it relationships and communication. Actually, I'm gonna call it communication and relationships. Wait, let's see what feels better. relationships and communication, communication and relationships. Good talk with Kim. Now, communication relationships. That's what I do. Please remember while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. or becoming bold with insulin. Kimberly groves is a licensed psychologist working out of Cherry Hill, New Jersey, New Jersey, New Jersey. What now? Wow. After the music, I'll try that again. That was a trainer.

Kimberly groves is a licensed psychologist. She works at the Center for emotional health Family Care Center in Cherry Hill, New Jersey. And she has type one diabetes. She also runs a living well with Type One Diabetes support group for family members and individuals. If you'd like to learn more about that, you can call 856-220-9672 for details and registration. It's an in I think it's in person but maybe it's online right now you know how the world is. Anyway. Kim is great. She's going to be back again. I really enjoyed talking with her. And if you want to hear more about our support group, which is free of charge and open to the community, well then call that number use the buttons 856220967 This show is sponsored today by the glucagon that my daughter carries. g vo hypo Penn. Find out more at GE Vogue glucagon.com forward slash Juicebox Podcast is also sponsored by the Contour Next One blood glucose meter. It is little It is easy to carry. It has a bright light. It's superduper accurate. It's the best meter I've ever used. Honest to whatever it is. You swear to. I'm holding up my hand right now as if I was in an 80s TV show. And my hand was on a Bible and I was in a courtroom. I promise you this meter is the bomb bomb diggity. Check it out Contour. Next One comm forward slash juicebox. Hello. I guess the first question I should ask you is can you hear me?

Kimberly Groves, PsyD 3:06
I sure can. Can you hear me? I can. Fantastic. Yeah, yes. Yes. improvement.

Scott Benner 3:15
I feel like my mom getting the Netflix on?

Kimberly Groves, PsyD 3:18
Yes. It is a little embarrassing. I even brought backups just in case I didn't have to make the trek up and down bunch of steps if this fails, so I am good to go.

Scott Benner 3:28
It's It's It's interesting, because I read your email, like after you had time to think about it. You sent it back and I thought oh my god, I made this person feel terrible. Or the situation at least or what? You know what went on? I felt so terrible. I wish at the time I would have understood better what was happening. I would have just been like, let's just stop. But it's very cool that you want to try again.

Kimberly Groves, PsyD 3:53
Yeah, no, not you at all. It was technology and my lack of knowledge.

Scott Benner 4:00
I didn't realize you were struggling. So I mean, listening back I do and like I trashed the episode, I threw away the file. But I just figured we'll just talk now and this will be terrific and etc. But I just didn't at the moment. There's a lot going on in my head while I'm recording one of these like, I wish I could say that I'm just talking but there's a lot more happening. So you know, anyway.

Kimberly Groves, PsyD 4:26
Yeah. Yeah, I thought I was able to just kind of, like get through it by just making some vague statements might fit. But then towards the end, there was just too many of them and I was confused as to what questions I was asking. So Well, yeah,

Scott Benner 4:42
I the only other time this happens, and I know this isn't your situation. But um, sometimes I get those emails from crazy people. So and I'd be crazy. I mean that in the very colloquial sense of the term, but They, they begin to overthink it. And they start, I could have said this, I could have said that I'm like, you don't understand what this all is like it, you know, we could have this conversation 1000 times you'd say 1000 different things. They don't don't get that. So. So we'll just start, you know, start fresh, you'll Introduce yourself any way you want to be known. And we'll dig into you a little bit. And then I think I really am, I've become very interested in the idea that people don't, aren't aware of why they're doing things. And I would, I would love to like, just talk about diabetes a little bit. And then, you know, kind of pick through that, if that's something you're comfortable with. Sure. Cool. Go ahead, introduce yourself.

Kimberly Groves, PsyD 5:48
Okay. Um, my name is Kim groves. I am a licensed clinical psychologist in Cherry Hill, New Jersey and type one diabetic.

Scott Benner 5:57
Kim, at the end of this, if people are just like, I loved Kim, and I want to see her Do you have to live in New Jersey for that to happen?

Kimberly Groves, PsyD 6:05
telehealth has offered some, you know, loosening of regulations, but it's getting complicated, again with this C pack thing. So, yes, so just for a short answer, yes,

Scott Benner 6:17
yes. Even Philadelphia, it's right there on the other side of the river. That should

Kimberly Groves, PsyD 6:22
Yeah. During the pandemic, we were able to see I saw people across state lines often, because they, you know, because of the state of emergency, if it was also saved emergency in a different state, we were allowed to see people, which was great, because oftentimes, if we see someone who's in college, and they go to college, in a different state, we have to kind of pause treatment. So it really allowed for, you know, those cases to continue to be seen. So it's it's been kind of nice with that, but I think they're tightening back up.

Scott Benner 6:49
Were those people grandfathered in?

Kimberly Groves, PsyD 6:53
No, it was just all due to the state of emergency where they were historically insurance. And, and our licensing boards wouldn't allow it because they were, you know, different state regulations, we have to take a jurisprudence exam in New Jersey to know the laws to which you would have to follow in a state of like a crisis situation that I don't know, in every state. So typically, it wouldn't be ethical for me to see someone where if they became suicidal, I don't know what to do in Virginia, so to speak. But when the world was in the state of emergency, the beginning figure there's bigger fish to fry. So by

Scott Benner 7:27
you wouldn't know what to do. You mean, you wouldn't know the people that contact or write protocol calls that they follow? Not that people's problems are different state to state? No, I guess they are, but not the core issues. Right. But maybe the Yeah, like I don't think I've ever had stress over working in a coal mine, for instance, that I don't see how that happened to me, I'd have to live near a coal mine for that to happen. But right, the stress would be okay, I'm okay. Okay. Sorry. I just want to understand, because it's one of those things that when people say it out loud, it sounds stupid, you know, like, but understanding the back, the kind of the back room reasoning for it that it makes sense. You know, like, why would it matter if you lived in Pennsylvania and experiencing anxiety and really liked Kim, and she was helping you the one thing I did find strange in that answer was that if you pick somebody up during the pandemic, you're helping them, and then all of a sudden, you have to cut them free. Is it? Is it professionally on you to find them someone else to speak to? How does that work?

Kimberly Groves, PsyD 8:31
Yeah, we, we make sure to find referrals within the area that they're in and, you know, try to, you know, we can coordinate with a new clinician to kind of catch them up to speed if the client would like, or we can have no contact if they want to start fresh. But yeah, I mean, this is all been brand new and a typical, but some states, you know, some therapists in my practice, I've gotten emails saying you have a week to terminate with this case, because we've decided you're no longer allowed to work across this particular state line. And then they have a week to scramble and find somebody new. And, you know, the mental health pandemic is a real thing. And we I my practice alone has about a six month waiting list. So it's a little complicated in one week's time to find a new person, depending on the state so because

Scott Benner 9:17
other people are gonna be in that same situation, right? What was the waitlist, like prior to COVID?

Kimberly Groves, PsyD 9:24
We always had one, but it was, I would say closer to three months.

Scott Benner 9:30
Wow, you almost need to know you need help before you need help. Right? What happens to somebody who's in an emergency situation that gets referred to a hospital?

Kimberly Groves, PsyD 9:40
It does unless it's you we do consider acuity when we have an intake, we will kind of we've transitioned to doing an intake first to just see what the need is for a person and then determine Is it safe to wait? Is it worth the wait for this particular treatment for you or should you go elsewhere? You might be able to be seen sooner or do you need to go Go hospital.

Scott Benner 10:00
So you can, it is a little on you can you can recognize a real imminent issue that might be common safety and say okay, no, no, there's no way you come right out like that kind of an idea. Yeah. Are you seeing people in person yet?

Kimberly Groves, PsyD 10:15
No, we've just started to talk about that. But it's in the regulations are still really strict where we'd be able to only see about half the number of patients a day than typical. And we'd have to do things that in a therapeutic relationship is a little odd, like temperature, tech checks and texting, it just kind of changes the whole dynamic of it also. So I've been a little hesitant to take that step. But theoretically, we're allowed, but I think it'll be another couple months before we're really back in the office.

Scott Benner 10:47
So when somebody comes walking through the door, it should feel like they're just walking into the den of their own home, and it's comfortable, and you're there. And it's Hi, and have a seat and how are you? And then it should feel it shouldn't be, please sit behind this Plexiglas while I take your temperature. And then let's talk through a facemask. Because that could already be the issue. Right?

Kimberly Groves, PsyD 11:07
Exactly. And my practice, actually, a lot of the clinicians specialize in treating OCD. And so that's been a whole separate issue of you know, people who previously had, you know, significant anxiety surrounding contamination, now come into this, quote, unquote, safe place with Plexiglas and temperature checks, and don't touch me, just kind of sets the stage for an anxiety provoking situation, which is the exact opposite world in some respects than what we want.

Scott Benner 11:35
I'm going to ask you a question that there's no way either of us could have known we were going to talk about so. Okay, I was remembering the other day that when I was in elementary school, ish, middle school, elementary, 6/6, fifth, sixth, seventh grade in that space there. I remember for the first time hearing, that if I slept on the crack in the sidewalk, it would break my mother's back. Okay. Right, this idea. And one day walking to school, along this long path, I recognized that I was unconsciously avoiding stepping on the splits in the sidewalk. I didn't think much of it. And then I came home, and it happened again. And then I went to school the next day, and it happened again, and about the third or fourth time it happened. Even as a young kid, I physically stopped myself, I stopped walking, I stopped myself mentally. And I said, This is ridiculous. Stop it, and then forced myself to step on the cracks checked on my mom after work, boom, turned out chairback was okay. And I moved forward. Did I stop myself from slipping into an OCD ritual?

Kimberly Groves, PsyD 12:45
Absolutely. That's there's exposure response prevention treatment right? There. Seriously? That's essentially Yeah, I mean, because, you know, for someone who becomes conscious of that, and then connects that what we call magical thinking to this is why mom's back hasn't broken in the past three days. So I didn't do this, I need to keep this up. And then it turns into all these other rituals that can really spiral out of control. And then you lose the evidence of stepping out a crack and your mom's back not breaking. And the further away you get from that, the harder it is to believe in it. So you exhausted that immediately, which was smart. I was

Scott Benner 13:19
a, I was a chubby little kid. So I didn't have anything else to do except for things. So I was able to spend my time. I wasn't busy with sports, or friends or anything like that. So I had plenty of time to think things through. But No, but seriously, I still I don't have a ton of childhood memories. But I could paint you a picture of that moment. Like I remember thinking, Hey, this is a weird, slippery slope. You're on here, buddy. Like, let's get off right now. And it doesn't make any sense. So let's just stop it. It really was. It was interesting. And if anything like that ever pops up. What are some other things like, you know, when you're driving on the highway, and you hit the Like, there's, there's you don't realize even on blacktop highways, but they're done in sections. So everyone smile, you hear it, click, click, click, click while you're driving like that. And I if I would find myself even like tapping my finger in between the cliques, I immediately put a stop to it. And I don't even feel like that was an odd thing. I just, it seemed to me reminiscent of the first thing and I was like, I never wanted to, but I don't have that happen to me frequently. It's just that if it should pop up during my life, I squelch it really quickly. Good. I don't know. I'm just that just really you said OCD. And I thought I wonder how many people that happens to where you just kind of fall into it? Is it um, is OCD like stuff like that an indication of something else? Or is it unto itself?

Kimberly Groves, PsyD 14:47
It depends. I mean, everything is kind of on a continuum. So there are some cases where it seems very much just biologically based and and you really can't make any connection as to who what where, why, but if you're prone to Anxiety by nature. And you know, even something like the stepping on the cracks happens, you know, there it's an unknown and unknowns are anxiety provoking. And that could be why you remember it even though it didn't go too far. Is there an emotion that starts to connect to an experience? And if you're already predisposed to being anxious, that's where it can, you know, again, kind of snowball into something that eventually presents some CD. It's interesting.

Scott Benner 15:23
Really? Yes. I'm sorry. That was way off of why you're here to talk. Yeah. I appreciate you answering. Yeah. Okay. So I have become super interested in helping people understand the things that they don't even understand about themselves. from, from a couple of different perspectives wrapped around diabetes. Before we get into those things, though. You have type one. Yes. Oh, when were you diagnosed? 15 years ago. 2006 2006. And you're 30 now so you were 15?

Kimberly Groves, PsyD 15:58
Yeah, yes. Let's pretend. Now. I will be 30 I'll be 38 next week. Okay,

Scott Benner 16:06
so eight years plus 15 makes you 23 when you were diagnosed? I was 22. I think that was close. Cheese. Kim. Just go with it. I mean, okay. Yeah, sure. Better cozier later, wouldn't it be great if I just if one day my math worked out? People just started going? Yeah, that's amazing. Scott, congratulations. You've added two small numbers together. Anyway,

Kimberly Groves, PsyD 16:31
no, you know, I actually will say that birthday mess is very complicated. When we do IQ tests, we have to calculate someone's age to the date as we're administering the test. And I've always found it the most stressful part of administering that exam. Because when you throw in the January factor, it gets complicated. So

Scott Benner 16:50
I have to be honest, you're not alone. I just talked to whatever voice assistant is around and say, how many days? Or has it been since blah, blah, blah, and then convert the days into yours? Yeah, I cheat a lot. And that goes all the way back to high school one day when I was like, I'll have a calculator when I'm adult. Why do I need to understand this? And meanwhile, I really didn't need to understand that math. And I feel stupid for not paying closer attention to it. Again, not the point. How was your diagnosis was it I mean, you were in college or out of college by then?

Kimberly Groves, PsyD 17:22
I was in graduate school. So I was living in Missouri at the time. I'm from New Jersey. So I was living in the middle the country. And I was my father was a type one diabetic. And he so I was familiar with diabetes. And I was I was actually ironically in a health psychology class at the time learning about teasing out different medical issues from psychological issues such as you know, depression can often look like high blood sugars, hypothyroidism, things like that. So we learned the basics to just know if someone should be seeking medical care versus loss. And, and I remember there was a slide about type one diabetes and the Hallmark symptoms that just never came up with my dad. I always knew he was type one, but never talked about his diagnosis. So I actually didn't even know the Hallmark symptoms, which were of course the weight loss, frequent thirst and urination. And, and I remember looking down and I had about four bottles of water or coffee or Red Bull. I was sitting on a sweatshirt because my tailbone was digging into the seat. And I would take full naps and our five minute breaks between classes, like during class, and frequent urination. I was like, Huh. Like when also, I guess I just didn't consider it was my age. I thought I dodged the bullet. And then I went out and I called my dad after that class, and I said, Hey, this is what I just learned. What do you think? And he said, to go by a meter, and you start testing. And then and then he did, which he thought it would lower blood sugar, recommend that I start drinking beer to lower my blood sugar because I worked

Scott Benner 19:08
for my father, because your dad would get low when he was drinking.

Kimberly Groves, PsyD 19:12
Yeah, I mean, eventually lowers your blood sugar. So he was thinking, all right, I can't give you my insulin pen right now. So just go drink a beer and get a meter and call the doctor.

Scott Benner 19:23
That's great. Oh my gosh, how old is your father now? So he actually he passed away last month. Oh, I'm so sorry.

Kimberly Groves, PsyD 19:33
That's okay. Actually huge unsolicited shout out to dex comms follow up though. He was I followed his sugars. He begrudgingly allowed that and one day he was the no data popped up and had actually happened a week before. And I called him and he was trying to shield his irritation because I you know, he's someone I had diabetes 41 Yours, you don't want to be bothered about it. But I was worried he lives alone. He was 73. And I was like, why is there no data? And he's like, I just ripped it off those annoying, like, okay. So, so he would do that. So I wasn't immediately alarmed. But then there was a couple hours, no data was no day. So I finally called him he didn't answer. I have two brothers. They both called he didn't answer as well. And text, he wouldn't get back to us. So my brother went over to his house and found him on the ground, he had had a stroke. And he was still alive, though. He's still breathing. And so we got into the hospital in time to where we were able to be there to say goodbye. And I think the follow up for that, because had I had no indication that anything was wrong. I probably wouldn't have checked until the next day.

Scott Benner 20:47
So when I got into say goodbye, I don't. Yeah, I'm so sorry. I know. For people listening, Kim and I recorded once already, and we had really bad technical issues. So I know some things about her. So when I asked about your data, I expected fully that he'd be alive and with us when you answer the question I apologize for, for bringing that up for you. But Wow, no, that's crazy. And you make me reconsider. I joke with Kelly sometimes she'll like wake up and she's like, is Arden alright? Like sometimes it just hits her like that when she wakes up? You know? And, and I go in the room and and I'm like, She's fine. I said, she's a little low. Like we fix it. She goes, You sure she's alright. I was like, I don't think she'd have a blood sugar if she was that. I like I'll joke like that sometimes trying to light heart and I realize it's probably not everybody's level of humor. But But, but it always makes me wonder like if a person wearing a CGM were to pass away with the CGM. How long would it be able to still read interstitial fluid, but your dad just was like he got irritated and took it off?

Kimberly Groves, PsyD 21:52
Yeah, not that time, though. The second time it was because he was. So actually he wasn't he wasn't fully dead. He was essentially brain dead. But no, this is he when they when the paramedics got there. So there was no data. And then I got there. And then when they cleared out his pathway and intubated him, his blood sugar's turn back on, why does he just start working again?

Scott Benner 22:13
Yeah, so that so when the circulation moved to a crawl in his body, than the interstitial fluid wasn't moving, and it couldn't read anything. And then when he Wow, that's insane. And I so sorry, that this is about your father, and so recent, because you just use the phrase fully dead. And I would like to joke with you about but I know, it's, it's just that we shouldn't. But let us remember him as the man who would have met a newly diagnosed person and told them, why don't you just get a beer until you can find an endo? Because that's rocks, right information. And I story. Yeah, I will put like a blurb in somewhere where we tell people that's not good advice. But um, I saw, you could see his thinking in it, though. It's really interesting. Yeah. I, you know, assuming next time he'd say, you know, I would prefer if he would have said, once you go for a walk or get exercise, there's other ways to make it happen. So, so Kim, I think going back to what I said before, and I guess kind of starting with people with type one diabetes, and I don't want to talk about parents and people a little bit but starting with people with diabetes. My, my biggest like interest is the illusion that people who don't manage in a way that ends with good healthy outcomes somehow don't care about themselves. And it can't be true that people don't care about themselves right? Or can it? What is it really happening to someone? And why does it look like they're just not concerned?

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Here we are again, and by Here we are again, I mean, me and you and us and them, everybody. We're here. What do we all need? We need a meter that works. We need a meter that works well. That works easily. And that works in every situation that we find ourselves in. Everyone who is using insulin needs a blood glucose meter that does those things. And I think you should check out the Contour Next One blood glucose meter. Now why is that? Well, yes, they paid me to tell you. But that's not why we've been using the the Contour Next One blood glucose meter for a long time around here and it is safe, not the best blood glucose meter I've ever used while Arden has had type one, and she has had type one now for just about 15 years. This one is accurate, it is easy to hold, easy to transport and easy to use in dark situations, I think that's really what you need. But on top of all that the Contour Next One blood glucose meter has amazing accuracy. And it features Second Chance test strips. And that means that you can touch some blood not good enough, and go back and get more without ruining the strip, or the accuracy the test and I don't want you to misunderstand, this meter doesn't need a lot of blood. I'm just saying you know, there's times where you come in sideways and you get a little or you can't get your finger to like an ear squeezing and squeezing a tiny bit comes out and you know, you save yourself like this will be enough. And you know, you know it won't be enough. But you just can't get any blood to come out. So you're just going for it and you touch it and it's not enough. And you gotta get more, I'm saying that situation, you're still gonna get accuracy and reliability, clear and easy to read screen. And if you want Bluetooth connectivity to your iPhone or Android to save your data. And if you don't want to, you don't have to like you can use the meter independent, or you can use it in conjunction with the app, you should go check it out at Contour Next one.com forward slash juice box absolutely terrific device actually possible that it might cost you in cash, less for the test trips, then you're paying through your insurance company for the one you have now. So it's really worth looking into for a number of different reasons. And the website's super instant, super insistency super easy to navigate, and easy to use. So won't take any time at all to look through Contour. Next One comm forward slash juicebox there's links in the show notes of your podcast player, or links at Juicebox Podcast comm if you can't remember that contour link that I just gave you. Alright, let's get to Kim, she can answer my question. And we'll get back into the flow this conversation. I love it. It really picks up here a little bit. Catch our stride, you know what I mean? Like a five row we're like moving groovy like, you know, it really takes off.

Kimberly Groves, PsyD 27:52
I mean, I think, you know, that's that's such an individualized situation. I mean, I think even someone who would say they don't care about themself, likely does in just maybe a very distorted unhealthy way. Because, you know, underneath it all everyone has, has an ego. So it's there somewhere, it just might be masked in, you know, some maladaptive patterns. So I think poor management, you know, again, I think is what comes up on your podcast a lot about just timing, you know, decades ago, what was said to people, you know, a lot of the, the barriers to management have changed now. So I think the reasoning will be very different from someone who was diagnosed, you know, 30 years ago versus today, because it's much easier to manage than it was historically. But I just think there's so many different stages you go through, so I don't mind answering the question, but I feel like it just it would I have a million questions for that particular person?

Scott Benner 28:53
Yeah. And I want to keep talking through it. Like, I don't expect you to be like, oh, here's a simple here's why Scott, cuz blue. You know what I mean, buddy? No, no, I, I imagine that. Like going back decades, there just weren't any more answers, right? Like that would you know, going back 30 years ago and saying, someone eventually ended up in renal failure or had a heart attack because of, you know, crazy all over the place blood sugar, so they, you know, twice a year, we're being picked up by paramedics because they passed out while they were sleeping and that having seizures like that I get, it's just a lack of, like, science just hasn't moved far enough. It would be like if I went and found a caveman and said, Can you believe these guys can't get to the moon? Like you mean? Like, they just didn't have enough tools? And so I would imagine at some point, you just settle into, Hey, I got a disease. This is as manageable as it is. It's probably going to shorten my lifespan somehow. I'm gonna try to be happy. But nowadays, is it just like, could it be frustration Could it be that you don't like what happens to a person once they're frustrated enough times and don't have have an answer, like is giving up? Is that is giving up a coping mechanism? Like if you just can't fight the fight one more time, because it doesn't seem to be a win at the end?

Kimberly Groves, PsyD 30:13
Yeah, absolutely. I mean, it is a 24 seven disease. And you know, that comes with burnout. And if someone doesn't have strong coping skills or you know, issues with their self esteem, or they're battling something, they're unconscious, you know, that could certainly result in not taking care of your health.

Scott Benner 30:34
If I said to you, that I want to retask a word, and I give you the idea of two boxers in front of you. And they're hitting each other over and over again, and one of them just can't hit it anymore. And they take one last big blow, and they fall over. And I want to say to you, instead of saying that that person lost, they burned out in that situation, right? They just couldn't fight anymore, is because I'm, I'm always I always rub up against the word burn out a little bit, like, like, it feels like it doesn't do the situation justice to me. Does that make sense? Meaning it minimizes it? I guess. So I guess meaning that there's so much more to it than just, I just couldn't do this. And I didn't want I think people read it as I didn't want to do it anymore. And I don't think it's a want. I think it's I think it's just you got hit one too many times, and you can't get back up again. And I know that's a that's a slim difference. But not being able to persevere, and not wanting to persevere, are two different things.

Kimberly Groves, PsyD 31:40
Yeah, absolutely. I think you can even look at that on a bad day, you know, a roller coaster day where you, by the end of that day, you just don't want to deal with your blood sugar anymore. And you might just sit a little high or, you know, not a little low but sit a little high, maybe more than you would typically because you just don't want to do it at the end of the day that a great doesn't equal, someone who doesn't care about it or want to take care of it in general just can be exhausted.

Scott Benner 32:06
And then you don't if you don't have the tools, then that's evil. Because I do see people like you said, maybe not so much low, but I do see people who spend a day at 55. And they're feeding their basil all day long. And it for some and it never occurs to them to just dial the basil back. Right, they get they get caught in this idea that, hey, this Basal rates worked for me for weeks and months, it can't possibly be that. But on that day, maybe that's not your problem. Like maybe the maybe the reason you're low, didn't begin with your basil being too high. But at this point, now whatever that thing is, your basil is holding you at 55. And instead of continuing to feed it, it would be so simple to back it off, feed it once and start over again. But instead, you'll see people get trapped for 1218 hours like I've been at that I'm exhausted, I can't eat anymore. Like you know, it really does happen. And and not being able to turn immediately to the insulin and say like how can I adjust this insulin so that this stops happening is a step that a lot of us step a lot of people miss and they get caught in that thing. And then I guess sort of like the stepping on the cracks. You can you can lean into it. And then a bad day can turn into a bad week can turn into a bad month can turn into like, my a once has been bad this year. And you know, like when do you stop yourself from stepping on the crack, like when you just go Screw it, I'm gonna stay on the crack for a while, like I'm gonna force myself back to doing this thing. And, and I guess also, once you start drifting in one of those directions, either very high blood sugars, very low blood sugars, you alluded to it earlier. It starts impacting you, your your mental acuity, and then maybe you get put in a position where you can't get out of it. Right? Because you're physically unable. So if that happens to people, how do they reset? Because that's the key right is to stop and start over. Where am I wrong?

Kimberly Groves, PsyD 34:02
Yeah, absolutely. I mean, and I think too, there's that's where I think some of the the knowledge that you've offered to the community is what's lacking for a lot of other people. And I think that's where people get fixed on those Will my Basal right rate is where it's supposed to be based on my inner said, two months ago, when I see him next month, I'll bring up that it seems to be off. And I think there's a large chunk of people that are kind of stuck in that mindset. That might change a little but wouldn't just let that day be. Well, today this is working. So I need to lower my basil rate for the day and not overthink it or feel like they need to consult their endo on it. So I think even they're just the knowledge base still is is a problem.

Scott Benner 34:43
What is that thing right there where you've run into a problem? You can I need a simpler explanation. Why would someone eat a bowl full of potato chips today? think to themselves consciously. This is not how For me, I'm not going to do this again, and then have a bowl of potato chips tomorrow. Like, take the food aspect out of it like, what's the piece in there? That makes the fight to fight your demon? Worse than the outcome you're going to have by continuing on the path? is there is there a human component to that, that you like no name for that I just wonder about.

Kimberly Groves, PsyD 35:27
I mean, it reminded me a little bit about someone, you know, most people either have kind of an internal sense of control and demand over their life or an external. And so I've used someone who would feel like I have diabetes, you know, and it's just like, it kind of owns them. And I need to consult an endo or everything's just kind of outside of themself, can get really stuck in those patterns of behavior, versus someone who has an internal locus of control and demand saying, okay, I've been diagnosed with this, how am I going to handle it, I'm not going to eat potato chips, because my you know, I don't want to wait, that's a long Pre-Bolus. Or I don't, it's not worth it to me, because the way that affects my body, so I'm gonna have fake potato chips, or you know, something and just kind of take more control over it. So I think that connects a little bit to esteem. But I think it's also the way people are raised. And I find that, that whether you feel in control of your life, or you let your life control you affects a lot.

Scott Benner 36:27
So there are people who feel like they can do anything. And there are people that feel like there's an institution or a thing that's running their situation. Yes. Okay. Is that does that normally fall along religious lines? Or could that could be political, I guess, as well, or even inside of a family? You know, my dad makes the decisions, my mom goes along with it, vice versa, that kind of thing.

Kimberly Groves, PsyD 36:52
I think it's deeper than that. I think it's I think it really is just something a little more. in me, that is skewed by early childhood experiences, typically. But you know, I think it's even if you look at religion, you could view that as how do I want to interpret this? versus, you know, I am to just follow the pack,

Scott Benner 37:14
the two people could go through the same experience and come out of it two different ways to absolutely, yeah. Because I see my upbringing is difficult for a kid. But it made me like, I'll say, like, jokingly, but I mean, this, I don't mean the part about the zombies. But if the zombies come, can you come find me, because we're making it to the end. And I don't know why that is. But that's how my hardships made me feel. Like I kept feeling like, this can't possibly be where I end up, like, I have to keep fighting. You don't I mean, like, there's a way out of this. And I used to base it on intellect, like, I would look around my surroundings and think like a person who's having my thoughts. Like, shouldn't be here. I don't think like I need to find the place where I belong. And this, isn't it. So I'll keep fighting to get out of this. And then I would just look for anything, any pathway, like I see life as an ever growing endless path of forks in the road. And you just come to one, make the best decision, come to the next one, make the best decision, just keep moving. But I know, people who grew up in similar situations to me, not in my not in my house, but in similar situations, and they crumbled. But they're not weak people. And it's fascinating, isn't it? So yeah, I mean,

Kimberly Groves, PsyD 38:42
okay, I think that's good. That's okay. I think that's a good example, though, of where you can see a little bit of the nature and the nurture. So maybe by nature, you have that just kind of a neat, you know, constitution have an internal sense of control and demand where I can figure this out. And then it sounds like your upbringing offered you an unfortunate scenario where you had to figure it out, and you had to kind of take some control and those different things so that probably just really send it home to have that, you know, confidence that zombie apocalypse, you'll figure it out because you

Scott Benner 39:18
have to, but then does it always bounce back and forth? Because now I'm, I recognize that my, my upbringing wasn't very supportive. So I'm more supportive of my kids, but my kids would see the zombies and be like, I mean, I guess we'll fight for a while but then I gotta find something else to do. You don't need me like, you know, they don't have that same. They didn't see the stuff I saw. So they don't they don't know how hard they you have to fight in those situations. I guess. I would just wonder like, Are my kids gonna raise tougher kids and their kids are gonna raise softer kids and their kids are going to raise tougher is it just it just bounce back and forth like that? Interesting,

Kimberly Groves, PsyD 40:01
it can go only, you know, in extreme situations, I mean there is often someone who grows up in a very dysfunctional household, then goes way too far in the other direction and coddles their children or shields them from any let downs in life. And then there are going to be these anxious sheltered kids that then wouldn't have that, you know, mental strength, so to speak, that you develop by learning that life is not all rainbows and butterflies. And then those kids could then in turn, go back and say, Good luck to their children, and let them you know, gain some street smarts and learn the hard way. And then there could be that back and forth. But usually it takes a really dysfunctional start to kind of start that cycle, I guess

Scott Benner 40:49
to those things are easier to learn when you're a kid, like sort of like snowboarding, when you don't really think about compound fractures, you just jump up on the thing and go, right. And then you can be presented with tough situations, fight through them, without the consequence being a real idea in your head. Right, yeah, that's interesting. So when people grow up, however, they grow up, and then they run into a diabetes diagnosis, you find some people who are just like, I'm not going to let this stop me, I don't care what happens. And you find some people who feel like that they run up against the thing or an institution, or in this case, a disease that is bigger than them, and it's going to run the situation for them. And they feel powerless in it. Is that right?

Kimberly Groves, PsyD 41:37
Yeah. And that could look kind of like a depressive, hopeless feel, or a more neurotic, anxious response to it, like, I'm gonna over research this, I'm gonna be perfect. I'm gonna, you know, that can be another way of responding to it versus what I think I told you before, I appreciate your perspective of here, right? I'd like more insulin, more carbs, you know, like that simplistic. This is today do any more insulin, instead of either over researching or feeling overwhelmed?

Scott Benner 42:06
Yeah, I feel, you know, of all the people whose situations I get to see from close up and afar, kind of mixed. It's interesting, because they're not right in front of me. But yet they'll share private stuff with me. The people that I end up feeling the worst for are the ones who are just like, tell me how much tell me exactly when to do it. I need to know the number. I know there's a there's an answer in here. And I'm like, Oh, that's, that's, that's bad, because those answers aren't going to be the same in three hours. So you need more of a vibe way of handling this and, and less of a, you know, how it's written down. I mean, it works for some stuff. Like, don't get me wrong, but but those people I feel badly for, because they seem the least flexible. And yeah, that flexibility is so super important with all this. Yeah. Okay. So kind of switching gears a little bit to like, the parenting side are the things that we talked about? so far? I imagine that the answers lie somewhere in that to this question as well, how come some parents come off, like they don't care, and some of them come off, like, it's the most important thing in the world to them. Because they don't also believe that parents don't care. I feel like they get stuck in situations happens to men a lot to where they don't want to mess up. So they go with, I'm just not going to get involved. So I don't make it worse vibe. Do you see that a lot with parenting in general?

Kimberly Groves, PsyD 43:37
Um, what would you consider not caring in terms of having a diabetic child? What have you seen that look like?

Scott Benner 43:45
They don't want to understand how to count carbs, or where to put the insulin and they you know, a blood sugar goes to 350 for six hours. And they say something like, it'll be all right. You know, but they don't want to. But if someone comes along a spouse, for instance, and says, Hey, I think if we just would have done this, this and this, this could have gone better than the doctor said, it's fine. That comes off as not caring to the other spouse. Yeah, you know, especially when one yeah, I'm trying really hard and the other one appears to not be doing anything.

Kimberly Groves, PsyD 44:14
Right, which is where I think then that can be I think, regardless, that tends to be more about either the individual parent or the marriage. You know, if there's sometimes in a marriage, if one party is the, you know, more neurotic one, the other person tends to maybe go further than even their natural baseline would be in terms of more relaxed to kind of create some balance and maybe that theoretically, in their mind would be for the child's interest of let's just let them be a kid to offset like so. You know, maybe the mom who's measuring everything you know, I think it can pull for extreme behaviors on either end. It might not actually be a not caring parent.

Scott Benner 44:53
Oh, so they come farther out like you for me to person who feels like they're vibrating. Do you know what I mean by that? Like they're so like nervous or anxious or whatever, like, you can almost feel like when you're in the room with them that they're vibrating. And I know that's a weird, but they're. So you're saying that if I'm in a situation with a person like that, I might go to the opposite, like, I might go to the extreme end of mellow to try to make a balance in the room. Yes. Oh, and that happens a lot.

Kimberly Groves, PsyD 45:22
Yeah, especially within a family system. I mean, there's what we call a family homeostasis, where there needs to be balanced. And so you know, everyone has kind of has their personality setup. And then based on what the family dynamics are, you kind of go into these different roles to create a sense of balance for the the greater system. And so if there's a super neurotic, vibrating wife, then the husband, who might not be super laid back might feel the need to be even more laid back in that family system to get to that homeostasis.

Scott Benner 45:53
Does the family. Oh, this is so interesting. So is there. So does everybody not necessarily get to be who they are, but they get to be their part in it. So there's an alpha, which probably gets to go first. And then right, and then the spouse acts the part that makes balance between the two of them. And then I would imagine one of the kids probably slips into a role, which could make other children's is my dog acting differently? Because now I am is what I need? Like, would my dog be a different dog? If he lived in a different house? Oh, my God, he would, wouldn't he? Kim, go ahead and read the research. But I would say I would venture to guess Yes. My God, none of us are being ourselves because of who we're coupled with. Well, you're you're the self within your family system. And does that work for situations as well? Like, are some people different because of diabetes than they would be without diabetes? Sure, gotta be, and I don't.

Kimberly Groves, PsyD 46:55
Yeah, I mean, I don't think it makes you not be yourself. It's yourself in a situation or in a relationship. And I don't think you have to be compromising who you are. I think that's why it's important that especially in a marriage, each party has their own individual thing, you know, outlet where maybe if there is something that they're, you know, leaving a little bit to the side for that greater good, which is healthy to have that outlet for that part of yourself. But it's, you know, that's what relationships are.

Scott Benner 47:25
Wow, this is great. I wish I would have had decent parents to explain the world to me, this would have been, I don't like, and I don't enjoy learning this stuff when I'm 50. I mean, I've seen it. You know what I mean? Like, I've witnessed it, and it makes sense. I've never had anybody say, yes, that that is right. I just I'm always guessing. Oh, so Okay. Alright, let's find, let's find the scenario here. So if you're in a relationship, or you're married, and your husband's the domineering one, and you're the laid back one in a in a male female relationship, and then the kid gets diabetes, the vibe that the husband takes, ends up being the direction, and then you have to play off that direction. And so if the husband takes a laid back 300 blood sugar's fine vibe, not only do you have to find a way to manage it, but you have to find a way to manage it without pissing off the alpha in that situation, where you have to get to the alpha and change their mind about it. And that doesn't sound easy at all.

Kimberly Groves, PsyD 48:33
Right? And it would depend on I guess, the reasoning if the alpha didn't want to take on the blood sugar, due to, you know, for whatever reason, and the other person was willing to take it, then that could just offset it. But yeah, there needs to be an unconscious negotiation that occurs. Yeah, nobody said, You're

Scott Benner 48:56
not really supposed to say this stuff out loud. It's like a dance, right? Yeah, you don't look at somebody and go, Hey, you're kind of an app on this. So what I'm gonna do is like, because that doesn't work what you have to so interesting, so talking is not always the key. Sometimes, I mean, go ahead, but sometimes those 50s ladies knew what they were doing. Right? Like, yeah, you know, in certain respects, absolutely. I'll put beaver in the backyard. I'll make I'll make a high ball for him when he comes home, get them a little chilled out and then we'll start telling them how much the plumbing bill is like that kind of stuff. What about like, when somebody throws it on you? What happens when you're not the alpha but you're also not ready for this thing. And, and someone your spouse is just like, well, you'll take care of it, you're home with them. And then you're you're sitting there thinking like, I can't do this either. Like, what the hell like I got diabetes for not having a full time job. Like that's, you know, II mean, like, how do they get thrown on me, and then you feel overwhelmed, and there's no one to go To this is a disaster Kim, is it true? Is it true that divorce goes up? When you have a chronically ill child?

Kimberly Groves, PsyD 50:08
it I mean, it could, it's because of that type of scenario. So if that person felt like it was being dumped on them, and they're not communicating, I mean, really, regardless of what the marital issue is, it tends to often just go back to communication. So if that spouse that felt dumped on, didn't have the either willingness or ability to effectively communicate to the other, that they felt that way, and that they were overwhelmed, and they couldn't find a common ground with that, then it is going to lead to a divide in the marriage that will just grow in something like diabetes, you know, can certainly make that, you know, distance more toxic than some other issues.

Scott Benner 50:50
But so we're having this conversation about like these kind of high minded ideas, but we're not really even far enough along in our evolution to deal with this stuff. Because this isn't really what ends up happening, right? What ends up happening is there's a rift, that will likely make the female feel less close to the male, that usually ends in less intimacy, when you take the intimacy away from the husband that it hits their ego, and then we're just spiraling towards divorce. That's basically what happens to people, right? Yeah, let's say go therapy go to therapy. How many hundreds of years are we away from people being able to understand that as it's happening, like in the moment, because right now, if people are listening to this, they're like, oh, a lot of this sounds familiar in my life, but I don't really, they don't consciously see the you know, what the things happening? They just see, like, we see real top level stuff. Like, oh, we used to have sex a lot. Now we don't as much she doesn't like me. I'm gonna start talking to Kim at work. Like you don't even like that. It just gets very base at that point, right?

Kimberly Groves, PsyD 51:59
Yeah, yeah. And it's Yeah, because it gets to be a touchy subject, I think especially like something with diabetes or chronic illness, it's a very heavy subject, and it becomes about the kids too. And it's, it's something that's very easy to avoid. And then days pass months pass years pass, and then it can just get harder and harder to get back on the same page. So,

Scott Benner 52:23
so are people's lives basically, having lost, getting together, getting into a slow unconscious decline. And then either Luckily, or unluckily bumping into something that brings it to the boil.

Kimberly Groves, PsyD 52:40
Yeah, I mean, I think I know, general awareness. Yeah. I think it's when you start to feel that way. I mean, that's what makes marriage hard, right, is that it's that dynamic happens, it changes when you have kids, it changes when there's life stressors, it changes with, you know, finances, and then you also individually change after a decade and more and, you know, and that's where it is work, to, to maintain a sense of self and, you know, wanting to be a part of that system. And so, it doesn't have to be a divide, but it just, it often does, especially these days, when life is so busy, and it's complicated. And again, it's very attractive to avoid conversations that, you know, could be difficult when it's just easier to just do the thing and solve the problem and move on. You know, if people, they'll start to have some awareness of, you know, I don't want this person to be around me, or I'm not even gonna tell him about this decision, because it's too heavy, then that should be a little bit of a red flag of something things wrong. And it's, it's, you know, early intervention is very important in terms of marital conflict.

Scott Benner 53:44
The the part I find sad is that as I get older, and I understand things better, that there's no way to go back and do it again. Like, that's the part that's just maddening. You're like, oh, wow, I see when I was 25. What I should have done there, and it's too late, or I see when I was 35. And I did this thing, and it impacted my children. Like, I can't just go back and explain it to them now. Like now they're just gonna have to live through it come into their own situation, and hopefully, do better with it than I did. It's that slow progress of mankind. Maybe you were not supposed to live this long. Like maybe it's not healthy to be able to, like, see what you did wrong. You don't I mean, like, cuz if I would have dropped out when I was 40, I would have had none of these thoughts. And I would have just been like, I did my best. I'm out of here. Whoo. You don't I mean, like I now now 10 years later, you start like getting kind of like thoughtful about it. And you're like, Oh, I see. And by the way, you can't I can speak for me and not all men, but you can't be thoughtful till the testosterone like dies down a little bit. Because until then, you're just constantly just like, oh my god boobs. Like, it just feels like that all the time. I know that space but it really is how it feels like you're just constantly thinking about pretty things or attractive things or whatever your vibe is. And then finally, when that kind of like dies down, you're like, Oh, I have more time to pay attention to other stuff. Now, you're not like on that mad terror to like be connected to somebody physically, which is, I'm assuming most of men's problems, right?

Kimberly Groves, PsyD 55:16
Well, I mean, it's the more primitive part of our brain that may be is, is to your point of if we were meant to live this long, and then you can access the prefrontal cortex once that the hormones are settling down in that region. And and then, since you are alive, you get to experience the wisdom of old age. If I could get 100 more years, I'd

Scott Benner 55:35
be a genius. Like, that's all I know, for certain, like, if I kept going at this, I'd finally be like, thoughtful and like, I think I'd be, I don't know, it's just the saddest part of being alive. Is it just as you're figure stuff out? Doesn't matter anymore. No one's listening to you. Just like that old man's babbling about something doesn't make any Meanwhile, you're finally making sense and you can't get the thoughts out. It really is interesting. So what okay? So we've picked through the things that I'm, I find myself interested with, and I appreciate you doing that with me, is, is literally therapy. The only way through this, because therapy really is a speeding up of being alive, right? It's having more conversations where you learn and build and learn and build instead of waiting for those scenarios to pop up in your life. And then actually being comfortable. Because you said something a second ago, like sometimes people don't say things. So sometimes you get to a learning moment, and you avoid it on purpose. But in therapy you can write is that ideal? Yeah.

Kimberly Groves, PsyD 56:38
Yeah, I mean, it certainly there's there's other avenues than therapy, but really, then it is kind of just life experiences. Whereas I think, people I might have mentioned this before, but I'll say it again, is I think, being a therapist during this pandemic, for me, it's been very interesting, because I people who never would have gone to therapy are now going. And I think people view therapy as I'll go with, there's a real problem or somebody you know, someone says, maybe you should talk to someone, no, it's not that bad. You know, wait till it's that bad. And it's really not that all that effective or deep. It's just Okay, let's figure out how to stop the bleeding. And then people will just go at Yeah, versus, you know, like, I've never, I've never really understood why I do this, or I keep finding myself in these patterns and behaviors and relationships that are unfulfilling, and I don't know what that's about. You know, and that doesn't seem like a, so you should go to therapy thing, but that is the best reason to go to therapy. And that's where you can kind of get to that, you know, emotional space of being that is a little typically beyond barriers. If all goes well.

Scott Benner 57:43
Can I ask a personal question? Sure. What's it like to have someone come in professionally, and have a problem that you have that you don't resolve? But you know, how they can resolve it?

Kimberly Groves, PsyD 57:54
has to happen, right? I mean, it would, it would depend on what it is. Yeah, there were, I will say that this with the pandemic stressors, there was a couple overlaps, where it was like, all of a sudden, people are home all the time. They're, you know, homeschooling their kids, which for me was throwing a worksheet over the balcony. And, you know, those types of stressors were very, it was almost like saying, like, I could say everything, this person just said to someone else, and so I wouldn't see that person. Because you can't help someone when you're in the same space. I believe my coping skills were a little bit better than what that person was presenting with. But still, the next week, she said something in the back of my head to be like, yep, for worksheet over the balcony.

Scott Benner 58:47
Yeah, I'm not gonna charge you this week. So I would imagine it's almost like, it could be at times, like being a sports coach who can't play, right. Like you could run into that situation. Like, I know how to tell you how to run this route and catch this ball, but I can't do it. It's just It's very, the whole thing. Like when this all happened, there were like, people in our town, I was like, they're totally gonna get divorced before this is over. And it happened. Like you could see it. You know what I mean? Like, and, and there's one person I'm thinking of, who said to me, there's no way like this has to end or I'm not gonna be living here anymore. And I'll be damned. He was right. Like it was, I don't know if it was a self fulfilling prophecy. Or if he just saw, like, part of how I've kept this thing together is by not being here all the time. It was fascinating, really was brought a lot of things to a tool boil. That it's really it's sad. It really is. But is it? Kim? Shouldn't we be allowed? Shouldn't we not allowed? Shouldn't we be able to live together in a constant situation like this with I mean, you know, some breaks here and there but like, should a pandemic really cause that many people's relationships to fall apart?

Kimberly Groves, PsyD 1:00:00
Right. I mean, again, it's how you choose to respond to a stressor, you can let it own you or you can own it.

Scott Benner 1:00:07
So then big picture, is it better to hold things inside or sometimes argue and yell and then let it go? For people who aren't going to talk it through?

Kimberly Groves, PsyD 1:00:20
I mean, it depends how you define argue, but better, you know, even you know, parents are often so worried about their children ever seeing them fight. And as long as the fight is not, you know, intense, it's actually better for children to see conflict, and then conflict resolution, if it's reasonable. So yeah, better to air it out than to sit on something like that, that will eventually pass but was never addressed. And then you end up, you know, overly mad about laundry or things like that.

Scott Benner 1:00:50
Thank you. And you don't know why I'm thanking you. But that's how I do it. So I feel validated. Thank you. But I just I grew up in a place where nobody said anything. And it seemed to me. And then what happened was problems looked like leaving. Do you know what I mean? So the one thing I took from that when I got older was, if we have a problem, we should say it because maybe then somebody maybe then it'll work out or even just be expelled. Like, sometimes it's just something you get rid of, maybe there is no real resolution, maybe there doesn't need to be a resolution, maybe it'll never come up again. But you got to get that part out. Like you can't walk around angry all the time. I realized life is just a bunch of T shirt cliches. They're probably the probably the best advice sometimes. But yeah, don't go to bed angry is is a good one.

Kimberly Groves, PsyD 1:01:42
Yeah, and usually when you you bring something up, you, you know, you look behind, I mean, every behavior has an antecedent and an underlying value and intention. And usually, when you air something out, if there are two people who care about each other, you can usually get to a space where you see that the intention is, is good, even if a behavior is not do or the opposite. And that's a bigger problem.

Scott Benner 1:02:07
Ready? I'm gonna ask a weird question. Do you think people ever talk to their, their, their partners, and relay a story about someone else? That they really hope that the partner will take something out of for them? Like, of course, yeah. Right. Like, you're like, let me tell you about Jim, in this one over here. Second, you start telling your story when you're like, really, like, I hope that they hear that Jim was sad, and I'm sad. or, or, or that, or that, you know, that his wife was unhappy, and I think you're unhappy too, or like that kind of thing like I, but they want but that same person would never look at their, their, their partner and say, like, I think this is happening to you, or I feel this, why do we not say that? Because we're afraid that the answer won't be. I love you. And it's okay. And we'll fix it. To people not say what they want to say, because they're afraid they're going to hear you know what, I don't care about this. Leave me alone go away.

Kimberly Groves, PsyD 1:03:03
Yeah, yeah. I mean, that's, that would be a scary topic to bring up. And so I think it's easy for either people to hide it in a story like that or not say it at all.

Scott Benner 1:03:13
So rejection, you don't want to be rejected. Yeah, in that situation. I wonder if we could magically make everyone just say how they felt, if there would still be the same rate of divorce, but it would be the different people? Don't I mean, like, say there's, let's put 100 people in your mind and 50 on the left and 50 on the right. And if we all keep our thoughts inside the 50, on the left, end up getting divorced. I wonder if we all let our thoughts out if the 50 on the left would stay married and the 50 on the right, we get divorced, like I want. Does that make any sense? what I'm saying?

Kimberly Groves, PsyD 1:03:46
It'd be an interesting study, I think. I think that's probably two extremes. Because if you say everything, then that can be a very taxing relationship. Okay,

Scott Benner 1:03:55
so let's finish with that. There is stuff you don't say, right? Yes. Is it mostly you remind me of your mother. Listen, I'm just gonna give a little marriage advice right here. Your wife never reminds you of her mother there, I fixed your life for you. You don't do that. That one's a bad one. But, but there, there are some things that are people's feelings, right? And you and you have to take a hit. So that they don't have to, like you have to have a little selflessness. Like I feel bad about this thing. But by saying it out loud, I'm going to make you feel worse or you're going to feel bad and I'm going to feel better. I choose to feel badly instead of you just have to be some of that like, love. Yeah, yeah.

Kimberly Groves, PsyD 1:04:39
Absolutely. Like if you see, you know, your spouse doing something that you know isn't is out of anxiety or is out of wanting to fit in and you know, that it's, you know, I don't know a little foolish or you just have a feeling that you know it's not best, but saying that would just hurt them and make them feel worse. Used to For debate, you know, if it's not hurting anybody, and it makes them feel good, instead of calling them out in that scenario, you, you support it. Even if you feel like it's absurd.

Scott Benner 1:05:09
That's the married version of when your weird friend in ninth grade wears a fedora one summer, you just let it go. Exactly, exactly. You're just like, hey, Bill wants to wear a fedora. Why don't I gotta say, yeah, let it ride. Okay. What have we done here today? Again, in your mind, have we? Have we put your license in jeopardy? Or? No, we actually spoke I believe I heard you the whole time, which is nice. Yeah, I will explain a second that the first time we talked there was, it's it's interesting, actually, now that we think about it. Now that I think about it, we were having trouble communicating for technical reasons. And you were pretending that it was going better than it was. And I noticed something was wrong, but didn't bring it up.

Unknown Speaker 1:05:54
We were Yeah, we were kind of married there for an hour. And we were, and I need to practice what I preach. Because, oh,

Scott Benner 1:06:02
that just occurred to me, as we were saying, and I was like, oh, everything we just talked about, we didn't do for that hour. So Alright, so let me ask you, can you hear me I heard you say last year, but yeah, let me ask you one other question, then. This is popular right now. Right? The idea of people who, you know, have a standing in a community or in a, in a profession, getting together with someone else and talking about it so other people can hear it? Is it actually helpful? Or does it just is this just filling time for people in a different way? Like, can I actually I know that I can do a podcast about how to Bolus for something, and people can hear it and go back into their lives and make a meaningful change it? Is this something that could actually help somebody? Do you think this would actually take somebody and say, You know what, let me go talk to a therapist, before I get into a bigger problem, or while I do do that, like Can someone hear this and make a change? Is the is the stuff that's going on in your head more difficult than the stuff that's happening in the real world to fix? Was I clear? Well, are there two questions in there? Yeah, I guess there are. The first question is, is stuff like this actually helpful for people? Or was this just entertainment?

Kimberly Groves, PsyD 1:07:25
I mean, I would, I would hope so that wasn't really my intention, I guess I haven't really, ever listened to a professional in my field anyway, doing a podcast. So I don't know what the angle would be. In general, I would say, you know, there's some basic things that people can offer in this format that can be helpful, but likely not too much greater than a self help book or something like that. And I think the process of therapy is something that is, is very complex and personal and really needs to happen just between a therapist and a client.

Scott Benner 1:08:02
So if you heard something in this hour that resonates with you, the next step is to go find one on one treatment, not like try to figure this all out on your own.

Kimberly Groves, PsyD 1:08:11
Yeah, I mean, I'm very biased, but I feel like every person at some point in their life should give themself that gets.

Scott Benner 1:08:19
This is a bigger thing. This isn't like when electrician tells you, you can't put an outlet on your own, but you really can't. But they're just trying to make work for themselves.

Kimberly Groves, PsyD 1:08:27
No, go look at a really uncomfortable mirror for several months to get to know yourself in a way that is is at first uncomfortable, but ends up being you know, it can be very life changing.

Scott Benner 1:08:40
Right. Okay. Thank you. Did we not talk about anything that we should have in your opinion? No. Did you have fun this time? I did. It was much better experience. I'm glad to hear you. Again. I feel very badly that we did it the way we did last time and that I wasn't completely aware. I started saying to you before we hit record, that I'm I'm doing more than just having a conversation like I'm running the the I'm making sure this gets recorded. I'm making sure that it's going to sound good later. I'm trying to think of what the people listening want to hear and mixing that with my own like, kind of in the moment thoughts. And so I might have been a little disappointed. This sounds like I'm apologizing to my wife for not being present. I have a lot on my mind, Kim.

Kimberly Groves, PsyD 1:09:31
That's fine. I beat so then I will own my 50% that I I should have been more clear that I was really unable to have a genuine conversation with you because I was so frustrated with the technology. And I was just guessing what you were saying and I should have I should have realized that that was going to equal negative outcomes. So

Scott Benner 1:09:49
interestingly, you got frustrated about something that wasn't under your control, and then tried to make the best of it. instead of stopping and, and kind of resetting, you were like, I can probably do this. I wonder how often that happens to people in their day? I bet you It just happens constantly. If we all said what we were thinking, do you think we'd all just kill each other? Because, dude, cuz you, you know what people are thinking because they come tell you, right? They paint a scenario. They say, this is what happened. Here's what I was thinking during it. So. So if we all just blurt it out, but we were thinking, would it be bad? Or would it be good?

Kimberly Groves, PsyD 1:10:34
It depends. I mean, I get it. But maybe the first thought could be bad. But usually, if you dig deeper, it can be good.

Scott Benner 1:10:44
Do most people just want to be happy? Is that at the core of what they're what they want?

Kimberly Groves, PsyD 1:10:52
I would say more understood, I think happy is as a hard word to define. I think if people feel connected and understood that happiness is a level of security. Yeah,

Scott Benner 1:11:03
I have to say that when I feel frustrated I my go to is no one listens to me. And I'm assuming that's how I felt as a kid. Sure, right. And I, to be honest with you, it was and I've described on the podcast before that I was adopted by really amazing people who maybe were not exactly my equals. And no matter what I said, they kind of stared through me a lot of times. And so I always felt like no one was listening to me. When I guess if I was older, I would have understood that maybe they didn't understand what I was saying. And instead of just feeling like they were ignoring me, I think maybe they were just like, hmm, we adopted this little kid, that seems smart. We'll just whistle and look over here. Like, I think maybe it was more the vibe, but it followed me right into my adulthood. Like that. I do not like it when people don't listen. And to each other, even like it doesn't I don't even have to be involved. It makes me upset when people don't listen to each other.

Kimberly Groves, PsyD 1:12:01
Right? So if so, if you look at that, in terms of relationships, if you didn't have that insight, and you were just reactive to that, you know, and you were yelling at your wife, because she didn't pick something out, you asked her to on the way home, and then she saying my you know, he's a jerk or whatever. And then you're saying she's X, Y, or Z. So yes, if you say we were think right there, you look like a jerk. And then if you were to dig deeper into how come that made you so upset, and then get back to the point of as a child, I never felt heard. And when they something like that happens, they have not feeling heard. That's where eventually when you you speak to what the issue is, then likely your wife would have empathy. And you would, you know, be able to reel that in, but they didn't say, and then it's helpful.

Scott Benner 1:12:46
So you could get matched up with a person. This is interesting. Do you have a couple more minutes? I'm sorry? Sure. Yeah. So you could end up and by matched up I mean, you know, you find somebody attractive when you're younger, and you're like that one, you know what I mean? Like that feeling? Yep. And then by luck, that other person has had a childhood experience that plays well with your childhood experience. Or sometimes you meet somebody whose childhood experience helps your childhood experience and vice versa. Like sometimes you're just, you know, when people say like, oh, the part of the relationship they don't have, and they're the part of the relationship I don't have. And that can sometimes work for people, it's probably not a completely fulfilling existence. But it works. Or but or you could get put into a situation where you both grew up very similarly need the same thing. And therefore neither of you can ever be there for each other no matter how much you want to be. Am I right about those things?

Kimberly Groves, PsyD 1:13:40
Yeah, yeah. Yeah, I mean, you can kind of go either way. That's why it's, maybe I get another t shirt saying, but people tend to really marry their, their mothers and their fathers. Because it's, it's what you're drawn towards, because it's what you're used to. And you know how to make that dynamic work. Hmm. So you can avoid that. I mean, you can. But sometimes you don't necessarily, it doesn't have to be a bad thing.

Scott Benner 1:14:04
I don't see it as it Yeah, I don't necessarily see it as a bad thing. I'm just wondering, like, you can't consciously you don't know what's happening. Like, even if you wake up when you're 14, you're like, oh, my god, she's a lot like my mom. Like it hits you out of nowhere. It's not like you were going to realize it when you were 19 and trying to talk her into kissing you. Like it wasn't going to come through then. You know what I mean? I know that's an old idea that the boys just try to beat something that girls want. But I'm old. So I realized that's not how it's supposed to go. It's just how I grew up. So we'll have to deal with it as I'm talking. You don't mean like now everybody respects each other? It's weird. Yeah. Just know. And it's nice, actually, like I see. To be honest. Like, I see how my daughter is not boy crazy. And I'm like, that's nice. Like she's not running around trying to make a personality for herself. That's based on how other people feel. about her. And yeah, when I grew up, it was just like you were just dying for a girl to like you. And my son doesn't have that vibe either. Like, he also is not looking for another person to complete them. And it's nice, because it makes it feel like you have more time to really meet people, and find somebody who fits well with you, who you actually, like, instead of the first person who looks up at you and goes, this one's acceptable. You know, like, it's, um, I wonder, do you see growth like that? through generations? Like, do you expect this story to continue to get better as we get older? Like, when you're a 70 year old, like seeing therapy patients? Will their problems be more refined than ours are? Because I'm assuming ours are more refined than our parents were?

Kimberly Groves, PsyD 1:15:51
Yeah, I mean, I think I think they'll just be different versions. But I think in that respect, it's, it's good now. And when, as you were talking, I start thinking about online dating and how, you know, then there's pros and cons to that. So I think the Pro is in part there is this pressure of the first person that clicks better make it work, because it's hard to meet people. There's this idea that, you know, it's easy enough for it to happen. And in theory, that's true. But then I do think then there's this idea of, there's this buffet of people, and if I see one flaw, I'm gonna kick him to the curb, because, you know, there's always hundreds of other people. Yeah,

Scott Benner 1:16:28
it's funny, I started thinking of it as basketball, like, you know, what basketball looked like in the 50s. And what it looks like today, like professional basketball, like I just thought, like, the game is the same, but the players get more athletic. And then that sort of changes the game a little bit. Like, the more in tune to people will change the dating game, and the relationship game. And it'll just continue to morph not necessarily better. I'm sure there are people who look back and just miss Larry Bird standing there. three pointers uncontested. But now there are like five Superman running around the court throwing a ball around. You know what I mean? Like, it's, um, yeah, either. Neither. It's just different. It's not bad or good. Oh, I'm so interested. I wish I could stay alive forever to see how this goes. But let's be honest. That potato chip, allegory from earlier, that was me, so I won't be here much longer. Right?

Nobody, nobody's perfect, right? You've never met a person that you're just like, wow, this worked out exactly right for them. Or they're No, no. No. So even the people who look like they have it all together just a mess in a way you can't say. I mean, I wouldn't say a mess. I know you're a professional. But I'm not. And so I get to say what have you heard the episodes with Erica yet where I tried to get her to generalize about people's mental health and she won't do it.

Kimberly Groves, PsyD 1:17:53
I heard the first one about I forget what it was about, but I heard the first one where she was on.

Scott Benner 1:17:58
Yeah, she stops me just like you do. You guys are very professional. I say something stupid. And you're like, That's not right, Scott. Don't say that. But I'm just trying to move the Congress. You understand him? I'm trying to keep Oh, yeah. Well, you and I are near each other. We have more of a geographical vibe. But yes. Also interesting why I like talking to Erica, he she and I are like incredibly different. She's very, she's very California. It's nice. Oh, okay. Anyway, all right. Do you hate me after this is over? This is really all I need to know. Where am I done? Okay.

Kimberly Groves, PsyD 1:18:30
No, no, no, this was this was a pleasure. I'm glad that you took the time to do this again. And that it worked out. You're silly. You're

Scott Benner 1:18:37
gonna come back on one day. You mean you're glad this was good? I like Yeah. Hey, I'm not going anywhere. Excellent. A huge thank you to one of today's sponsors. g Vogue glucagon. Find out more about chivo Kibo pen at G Vogue glucagon.com Ford slash juicebox you spell that GVOKEGL Uc ag o n.com. forward slash Juicebox. Podcast like to thank the Contour Next One blood glucose meter for sponsoring this episode. Thank you so much Contour. Next One. I feel like you are that person and that I know you. But I think that's just because of how I talk on the podcast but that's not the point Contour Next one.com forward slash juice box. Check them out. And one second, I'll remind you how to get old again.

Once again, Kim groves is a licensed psychologist. She works at the Center for emotional health Family Care Center in Cherry Hill, New Jersey, and Kim facilitates a free support group for individuals and their family members. This is all ages monthly support group focuses on the emotional adjustment to a new diagnosis, management of the disease finding a new normal and gentle General issues related to living with a chronic illness, it's facilitated by Kimberly groves at support group is free of charge and open to the community. If you're interested, please contact 856-220-9672 in New Jersey, get that phone number, you'll get more details and even be able to register, I have to thank you very much for listening to the show for sharing it with others and for something else. And I feel I'm not uncomfortable. But this is outside of my wheelhouse a little bit. I think maybe I'm from the wrong generation. But I need to thank a number of people who put together a buy me a coffee campaign for me for the podcast. Apparently, apparently, I mean, it's a thing where you just go to buy me a coffee.com forward slash juice box and you can send me a couple of dollars or have a membership and you know, rotates it's it's I can feel how uncomfortable I am saying this, you might be able to feel it as well. number of people came to me and said that they wanted to do more for the podcast and just listened to it. They wanted to add a little bit of money periodically. And they asked me for a way to do that. And this is the way that we came up with it was reasonable to share with other people is very humbling, that people would do this, you please do not need to feel any pressure about this, the podcast is ad supported. And it will exist for free as long as I as long as I draw breath, and I can keep it existing for free. But if this is something you wanted to do, I certainly didn't know I generally appreciate it. I genuinely appreciate it. And I generally appreciate I guess I generally and genuinely appreciate it if you do that, but we threw it up. And I was overwhelmed by the number of people who did that. So as crazy as this sounds, because it's coming from me. It's been explained to me that people want to do this, and that they need an avenue for it. And even though it kind of makes me uncomfortable, I understand that. And I'm very happy that the podcast is such a positive light for people so much so that it draws them to want to do more. So if you do this, I will take the money and let me be honest, I guess I'll pay my bills with it. I'll try to better the podcast with it. I will try to make a make sure that the podcast remains free for as long as possible. But don't get me wrong. I'm not saying you do this or the podcast won't be free anymore. I do not I do not ever want to put the podcast behind a paywall. I don't think there should be even a $1 barrier between you and the show. Anyway, I guess the internet's a different place than it used to be and generations think of stuff like this differently. But I just went on very long to say if you'd like to send me a couple of bucks, buy me a coffee.com forward slash juicebox. I really appreciate it. Thank you. So it is really humbling to think that anyone would be interested in that is is a little overwhelming. Anyway, I've babbled long enough. I hope you enjoyed Kim, I very much did I'd like to have her back again. That's it. You don't take some questions for from you guys and have her back on. I just thought she had a great way about her. I will talk to you soon. Thanks so much for listening. Juicebox Podcast is a it's a passion for me. I'm glad you like it. I'll talk to you soon.


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