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Scott Benner 0:00
Hello friends and welcome to episode 983 of the Juicebox Podcast.

13 years ago when she was 19 years old Lauren was diagnosed with type one diabetes. She also has hyper parathyroid itis signos thyroiditis. My let her tell you while you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. We're becoming bold with insulin. If you're thinking about getting a Dexcom use my link dexcom.com forward slash juicebox considering an omni pod Omni pod.com forward slash juice box. And if you'd like to get a free year supply of vitamin D, and five free travel packs with your first order, go to drink ag one.com forward slash juice box I drink ag one every day. And you could too. Don't forget to check out the private Facebook group Juicebox Podcast type one diabetes for all of your diabetes community wants and needs.

Today's episode of The Juicebox Podcast is sponsored by us med. Now us med is where my daughter gets her diabetes supplies from and so can you to get started. Just go to us med.com forward slash juice box or call 888-721-1514 Get your free benefits check and get on your way with us med. This episode is also sponsored by cozy earth. Now cozy earth.com is where you go. And the offer code you use is juice box at checkout. Why would you do this? Well, you're going to save 40% off of your entire order at cosy earth.com When you use my offer code juice box, that's sheets, towels, clothing, everything they have 40% off with the offer code juice box at checkout. All right,

Lauryn 2:25
hello Scott. My name is Lauren. I'm from Chicago. I am a type one diabetic. I was diagnosed back in 2009 kind of a fluke situation. I currently use an insulin pump. I know you didn't tell me to say any of this, but I kind of went on a roll. Good. Use an insulin pump. I'm excited to kind of talk through just my really I think it's interesting story. So here I am.

Scott Benner 2:49
I will be the arbiter of whether or not you're interesting. diagnosed in 2009 How old were you then?

Lauryn 2:57
I was 19. So it's been about 13 years. Yeah. Back in thanksgiving. Actually. I was diagnosed.

Scott Benner 3:03
Okay. All right. And you have type one. Do you have any other autoimmune issues?

Lauryn 3:07
I have hyperparathyroidism so I suppose that's a constant issue. Yes. In addition to type one diabetes,

Scott Benner 3:14
why this is the only podcast in the world where that makes you extra interesting. Superstar. So thank you so much. No, absolutely. I somebody came on one time. They're like, there's so much wrong with me. I knew I had to be on the show. Unlike other same way. Yeah. Unlike other podcasts where it's like you're on a TV show. That's exciting. I'm like you have hyperparathyroidism it's amazing. Okay, so 2009 19 years old. Were you in college?

Lauryn 3:44
Yeah, so So before I went to college, I actually studied abroad in Israel. I did like a gap year program. I didn't see that when coming probably. I studied in Israel for a year kind of taking some secular classes. It was kind of like a religious program. And I got really really sick that's kind of the abbreviated version. I thought it was food poisoning me my roommate were both really sick. And then mine didn't go away so she felt better and then over time, I was like, This doesn't seem normal that I'm still not feeling well. Yeah,

Scott Benner 4:11
I got the worst food poisoning it's never leaving. And you would literally never leave you traveled abroad in Israel. What do you Lutheran? I'm just I'm Jewish. So getting to know each other, how long were you there?

Lauryn 4:27
I was there for about six weeks. The program started in like October I got really sick in November. And then after the diagnosis, I was in the ICU for a bit of time and then I actually got to go back in February so it was a nine month program total

Scott Benner 4:39
Oh, I almost thought like oh god her thing got cut short because of this and but you didn't go you would just went back on a different trip later. So it

Lauryn 4:46
was the same trip my parents must have been like a little crazy. They let me go back on the same trip in February after I kind of recovered and spend some time at home I know. Bless them.

Scott Benner 4:57
They fly you home fiction Then ship Yeah,

Lauryn 5:00
pretty much in a nice little bow. I was I had an emergency flight home from Israel. It was like, if a lot of talk about finances like a $40,000 flight home from Israel, I flew with like not and Yahoo's paramedic. I had a nurse I had some first I know as a whole situation,

Unknown Speaker 5:18
who your parents. They did

Lauryn 5:20
not pay for they was all insurance based. Yeah. Well, I guess I don't know all of the details of that. I have a family friend who's Israeli and spoke Hebrew and helped create the flights. He's a doctor as well shout out to Dr. Al Judah.

Scott Benner 5:36
That's really amazing. How sick how sick were you?

Lauryn 5:39
I was really sick. I was at the ICU in Israel outside of Tel Aviv for almost three weeks and they thought it was appendicitis. So they wanted to remove my pancreas. But I did have some friends who also spoke Hebrew and they were like, Let's take get a second opinion.

Scott Benner 5:53
I think you meant to say pancreatitis, instead of I didn't.

Lauryn 5:56
I meant to say they thought I had appendicitis. They didn't know what was wrong with

Scott Benner 5:59
me. They thought you had appendicitis and they wanted to remove your pancreas. I'm sorry, appendix. You misspoke somewhere. And I was like, you were like, my head hurt and they tried to cut off my foot. Okay, so they thought you had pancreatitis.

Lauryn 6:15
They thought I had appendicitis and wanted to remove my appendix. Found out. Yes. Thank you for the clarity.

Scott Benner 6:23
Somebody's gonna listen to you. I know. It's like I know this. So someone stepped in and said this doctor, I'm imagining that you know, and stepped in and said, Hey, like, slugger. Oh, that doesn't seem right. Yeah. Yeah, exactly. What are your symptoms.

Lauryn 6:38
So the night that I got sick, I had like a lot of vomiting. Just really fatigue. I spent four hours at the hospital waiting to get just like seen by a doctor. Finally, they said there was a lot of like inflammation near my abdomen. Just like again, feeling really nauseous not being able to hold my bladder and things like that. I had one of those tubes that kind of go through the nose, couldn't tell you what that's called, where it kind of like goes into your system. I had that for about two and a half weeks. That was super fun. And then kind of just over time, they were like, oh, you know, maybe there was a different organ that we missed. And then they realized it was pancreatitis, and by then I was already on a drip of insulin. Because my blood sugar's were really crazy.

Scott Benner 7:16
Wow. That's correct. And are you type one at that point?

Lauryn 7:20
Yeah, well, so they told me that I had so I did get diagnosed with pancreatitis when I flew back to the state. So it was acute pancreatitis, the doctors figured that out. They didn't know what caused it at that time, but they were like, You know what, you're on insulin, it could go away. They did tell me within a year or so that if my pancreas healed, I actually wouldn't be diabetic. And here we are. 13 years later, still on insulin, but they figured out after about four weeks in the hospital in the states that it was caused by a parathyroid glands that was kind of like all the way down in my chest. Yeah. So kind of

Scott Benner 7:51
how crazy is that? You know, I'm online to our talking hyperthyroidism or hyperparathyroidism is when your parathyroid gland creates high amounts of parathyroid hormone in the bloodstream. These glands located behind the thyroid in the back of your neck are about the size of a grain of rice.

Lauryn 8:06
Yeah, that's and you have four of them. Yeah, yeah. Now it's crazy.

Scott Benner 8:11
So what did they do? Well, yeah, what do they do for this? Do they remove things? Do they medicate you? How do they handle it?

Lauryn 8:19
Yeah, so back in the States, I was on insulin, like for a long time. I mean, I'm still on insulin. But then about maybe six weeks after being in the hospital, they removed one of the parathyroid glands. So this really amazing surgeon with long skinny fingers, I guess, like pulled it out. But that's the story. They tell me. But it like broke, because it truly is so small. So she had to like scope it out. Yeah. And then from then, you know, a lot of the symptoms started subsiding. And I was just now like, a diabetic.

Scott Benner 8:47
Now you're young, then this question might not you might not know the answer to this question. But do they take out just one because one was defective? Or do they take out one because they just wanted you to have three?

Lauryn 8:59
Because it was defective? Yeah. So they were all on your neck. And mine was like, all the way down in my chest. They took out the one that was all the way down there. Wow.

Scott Benner 9:08
So and this is on these, these four things, these four parathyroids are on the thyroid gland itself? I think it sits right behind parathyroid glands. Okay, on the back of the thyroid. Yeah. So it sounds like a delicate surgery. Are there any other issues that you're now looking like are you concerned about in the future or does this not or is this problem not indicative of other problems?

Lauryn 9:32
Yeah, so they told me later on that something, you know, they checked, I get a check every year, you know, they check my levels of everything right now all of the other parathyroids and thyroid glands are intact. So it's just the pancreas that truly isn't functional like at all.

Scott Benner 9:46
So you don't take Synthroid or anything like that.

Lauryn 9:49
I take calcium medication, so like a calcium supplement every day, but that's about it,

Scott Benner 9:53
because you're now not making as much calcium or it's not being regulated the same.

Lauryn 9:59
I overproduced is calcium because of the hyperparathyroidism? And now I take it like once a day just to kind of even out the levels,

Scott Benner 10:07
because it's been under producing at this point. Yeah. Wow. Yeah. Geez, that's insane. It's a wild story. Are there any people in your family who have gone through this? Or are there other autoimmune issues back in your in your family line? And Could everybody in the world stop calling me at the same freaking time? Podcast? Sorry.

Lauryn 10:28
Is that questions about hyperparathyroidism? Maybe

Scott Benner 10:30
this is going to be my mom, by the way, who is now going to assume that the phone didn't work and try again? And if I text her will never see the text.

Lauryn 10:42
Sorry, if you need to take a phone call. That's I don't

Scott Benner 10:46
think I do. Unless Can you imagine if my mom passes away after this and it's your fault line that I didn't answer.

Lauryn 10:51
Oh my god, I will never be asked me on a podcast again.

Scott Benner 10:54
You'll be it'll be a mush. Bad luck. Sorry. I'm sorry. That was my question.

Lauryn 11:00
You asked if anyone in my family has any other issues similar to mine, thank you. Quick answer is no. My grandmother is type two diabetic. He was diagnosed in her late 70s. She's not by any means have any other issues except for maybe you know, the grumpiness of an older woman. But there's no other type one diabetics. I had like an uncle on another side. If on the other side who had who had type one diabetes, but we're not blood

Scott Benner 11:22
related. It's just the guy you know. hyperthyroid? Hashimotos. Let's see celiac. Anything. Yeah, bipolar grandmother anything at

Lauryn 11:33
all? You'd think but no, no. Wow.

Scott Benner 11:37
makes you a real anomaly in your family.

Lauryn 11:39
It really is goofy. Yeah, I don't think I had any predisposition. And pancreatitis I've always been told kind of happens in like, maybe some older people who have some big drinking habits and things like that. So I had none of those.

Scott Benner 11:50
You hadn't done 40 years of drinking and your first couple? Not at that time. They never gave you any reason for why this happened.

Lauryn 11:58
No, the biggest thing I could uncover from all of my like Googling and stuff was that it was like a dormant defective gland that kind of just, you know, I don't know if it was like stress induced or something like that. But I still to this day, I've had doctors come in and ask me questions for textbooks. And there was a lot of like learning doctors at the hospitals who were like, you're a puzzle. And that's why I was like, That's unhelpful, but

Scott Benner 12:20
it's just it's not really anything you can pin down but do you? Have you ever wondered just the illness like the food poisoning? Do you feel like it like pushed you over an edge or something like that?

Lauryn 12:32
I truly have a vengeance against this Chinese restaurant in Israel. I'm like, I will never go back. I have really been. But I do think about it sometimes. Yeah.

Scott Benner 12:40
Well, I looked up the restaurant and it's called the parathyroid killer. So I don't know why you went in there.

Lauryn 12:46
I think it closed now because of bad press. The bad story

Scott Benner 12:49
about one girl's thyroid explodes after she has a dumpling and we can't do business. Chinese restaurant in Israel must be amazing, right? I'm sorry. It must be amazing food. No,

Lauryn 13:02
dude, it was so good. I went there like all the time, too. And to not be able to go back was a real bummer.

Scott Benner 13:07
I was gonna say you can't you can't pawn bad Chinese off on Jewish people. They weren't happening at all. Can I ask you an existential question? here for a second? As a young person, something that odd going wrong inside of your body? Do you lose a little bit of that? I don't know what to call it like that. That feeling like you're Superman when you're younger? Does it screw you up? Do you know what I mean?

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Screw you up. You don't I mean, yeah, it's

Lauryn 17:39
a great question. And to be quite honest, I actually think I had the opposite effect. I don't know if it was just this religious program that I was a part of it was it was an orthodox program. I loved it. I myself am not Orthodox, but it was a very spiritual program. And I almost feel like it was like I was in this really great spot of being among people who are pious and holy and people would visit me all the time. And I actually, you know, I really didn't feel that I was in like a depressive state or kind of like, Why me, I think I had a really amazing support system. I got very lucky my best friends run this program, too. They'd come and bring guitars and they'd sing and they would you know, be there a long time, which is awesome. So I think if I didn't have that, for sure, I would be a little bit more like,

Scott Benner 18:19
yeah, I was wondering about if your brain goes down the road of like, well to incredibly uncommon and rare things have now happened to me, that would make you feel like you were on unsteady ground. But so it sounds like support from other people helped you from having to wonder about that.

Lauryn 18:35
Absolutely. Yeah. And I mean, I was never alone. I think part of its being 19 in a foreign country. So there's always someone kind of with you at the time. Definitely helped a lot.

Speaker 1 18:44
Okay, so now we're home after the trip, which I guess I would not diabetes related. But it'd be wrong to ask not ask you like, what was your big takeaway from your trip? What do you think it did for you? And what did you learn?

Lauryn 18:58
Absolutely. I would say in general, just becoming a stronger person. I think I'm a little bit passive a little bit soft spoken. I think it really taught me to it kind of grew up a little bit. I think I really had to kind of be more independent, I had to kind of navigate these like crazy difficult things that maybe college students don't experience their first year in college, but it really made me kind of appreciate my family more and kind of being away from them. And yeah, kind of just building strong relationships with

Scott Benner 19:25
people things people don't normally experience like rocket fire or just like being on your own. And then like how, what was your experience? Like while you were there?

Lauryn 19:32
Yeah. So I would say you know, we had a lot of autonomy, which was awesome. I definitely felt nervous sometimes a walking alone, but we were always kind of like chaperoned and supervised. But it was really amazing. I mean, just experiencing a different culture that was outside of my own and really having to navigate that not knowing the language. I still don't know Hebrew. I always kind of like showed my phone like this is what I'm looking for. Yeah, it's just the bathroom, you know,

Scott Benner 19:57
scary going into a hospital nothing. situation?

Lauryn 20:00
Yes, definitely a shout out to all the nurses, even if they don't speak English do their best to help you through everything though. They have roommates there. And maybe America does this too. I had to like share a room with like a woman similar to my age. And she had been there for like three months. And as she was like getting discharged and checked out, she left me this like poster that in Hebrew had some nice beautiful saying, and she blessed me and like, that was really cool. I had no idea we kind of grew close, I guess we shared a room for like three weeks. But that was kind of a different experience, you know, different roommate experience or

Scott Benner 20:33
speak to your parents about it afterwards, and what it was like for them to have a young child that far away and sick.

Lauryn 20:38
Yeah, definitely traumatizing my Jewish, my poor Jewish mother. Just every day awake. And the time difference was really tough. I remember calling them and this program kept Shabbat. So like, it was like a big deal that I called them. And I was like, Listen, I'm at the hospital. Don't freak out. But like, I don't know what's going on in my mom's like, What do you mean, you're in the hospital? And what do you mean, we have to come get you? And yeah, they definitely I was surprised they let me go back after, after all that.

Scott Benner 21:04
Okay. So for everyone in the middle of the country, who is now wondering, I think I know. But Shabbat Oh, yes, people what it is. So Shabbat

Lauryn 21:12
is a Jewish, weekly, I don't know if holiday is the word but observance where you don't really use your phone, you don't drive. It's really a time to be together with your family be with guests and things like that. And so on this program, we were having something called a Chaba tone where we were actually offered campus and we were at a different city. So we were kind of singing and eating and things like that. And we don't use our phone or electricity and things like that. And all of a sudden, I'm like ill, and I was like, I gotta call my parents.

Scott Benner 21:40
Alright, Lauren tests my understanding of the faith. Okay. Is it true that sometimes people will like, have a neighbor turn on something to get around the Shabbat rolls? So like, yeah. Is that right? Like you? Maybe you get a, you can't directly ask them? Right,

Lauryn 21:57
right. You gotta be sneaky about it called a shabbos goy.

Scott Benner 22:01
I know, things I shouldn't know. And I didn't want to say go out loud, because I wasn't sure if I wasn't allowed. But so you can kind of like, like, in an example, where you were in an apartment building, and you wanted to use a, I don't know, a light or something like that you can't turn it on. But you could have someone to your home and then mention how dark it is and how to reset hope they turn the light.

Lauryn 22:24
Right? Right. So it's very true. Yes, you can kind of like indirectly be like, Man, it'd be great if we, you know, you know, accidentally turn the bathroom light off. Right? You're not supposed to directly ask,

Scott Benner 22:36
and do people sometimes leave lights on so that they have them for the next day? Is that right to?

Lauryn 22:42
Absolutely, yeah, I

Scott Benner 22:43
don't know that.

Lauryn 22:44
Do you know a lot of Jewish people?

Scott Benner 22:45
Well, yes, but that's not why I'm gonna guess it's somewhere between a sitcom and Howard Stern that I know that those are my guests. Sounds right. Yeah, that there's those are my guesses about why I might because as you were talking about, I was like, I think I know more about this, which is just excited. In general, because you can imagine if I can't interact with you during this conversation, it's just really you talking. Me sitting here going? I have a pot? Yes. But I don't say much. What does that really mean? At this point, I have the ability to record you. I mean, if I'm not in the game. Alright. So tell me a little bit about being diagnosed with type one diabetes. At that point in your life. Obviously, it was a shock. But how did you know you had type one?

Lauryn 23:27
Yeah. So when I was hospitalized, they basically were like, Hey, your pancreas does not work. You have something called type one diabetes, which makes you insulin dependent. And at that time, I really didn't know anybody growing up that had diabetes. I really kind of I knew my grandma took some like oral medication. They really had to explain it to me, like a five year old. They were like, you are going to take these like needles, there's going to be medicine in there. And I wouldn't give myself shots for probably like three months. I was like, I couldn't do it. I had the doctors do it. I had my parents do it. It was like so freaky. To me. I feel like everyone has like a needle phobia, right? That's the thing.

Scott Benner 24:01
I have to tell you, I never understand when people like I'm one of those people who doesn't like needles at my Who do you think are people who do like them? Exactly. Right? Like a secret society of people are like, oh, you know what I love? It's easy for me. Yeah. But you you resisted it longer, though, that a lot of people do. Yeah.

Lauryn 24:20
I think the denial stage lasted a number of years. And then slowly I was like, alright, this stuff is not going away. This is something I'm gonna have to just like, learn to do on my own. And I actually did not get a pump until about six months ago. I'm 32. Now, I didn't get a pump until six months ago because I was so against it for so long.

Scott Benner 24:39
I'm gonna ask you why in a minute. But first, if I don't ask you this, I'll never forgive myself. When you didn't want to give yourself shots. Did you just trick your neighbors into doing it?

Lauryn 24:50
No, I did it. Yeah, that's funny. So I started using some humor to cope with it and my fiance will yell at me he's like, don't tell them used to shoot up. That's not funny, but I feel felt the need to share that joke that I would just kind of like a little bit make light of it like I would leave and go to the bathroom and do it. But it took mentally, like a long time for sure to like,

Scott Benner 25:09
okay, the idea of I've never really dug into this with anybody. So is it the pain from the needle? Is it the idea of you doing it? Could you not bring yourself to watch it go in your skin? Like what was it about it that really stopped you?

Lauryn 25:22
I have a very high pain tolerance. I don't think it was the pain. I think it was watching. Because what I think happened the first time I tried to do it, I think I like missed or it didn't like break the skin. And I was like, oh, shoot, I have to do this again. So yeah, I think it's kind of the contact of the needle in the skin. It gives me like the heebie now it's fine. But the first couple months? Yeah, I think it was like you have to make sure you're doing it kind of an angle to make sure it

Scott Benner 25:45
goes interesting. And tell your fiance by the way that I imagine everyone who has diabetes has made up. I'm gonna go shoot up. I'll be right back. I don't think no one's not made that joke. So he's worried about the wrong thing there. Okay, so it took you a few months to get through that. But then you obviously were fine, because you didn't have a pump for years and years. And then I want to know about that. I want to understand a little bit about what stops you from wanting an insulin pump?

Lauryn 26:14
Absolutely. So I will say I did try it. I had the Omni pad for about six weeks. But when I got my first job working at a hotel, I was in community college at the time, when it runs out of insulin, it makes that dog piercing sound that like literally only animals can hear. And I was like, There's no way that I'm gonna, like live with this noise all the time, like what is happening. And I didn't know how to kind of navigate that. So that was a huge factor.

Scott Benner 26:40
I wish you would have known me because I would have told you don't let it run out of insulin.

Lauryn 26:45
Great advice at the time. They're like, don't let it go low. But it happens. Yeah, a number of times. And it's piercing. And I kind of remember just like taking it off and throwing it away. And I was like I'm over this. I can't do it. Part of it too. You know, when you're in college and you're young and you want to wear clothing that's tight. And you know, the people can see it. I think there was kind of a stigma for me that I wasn't ready to be like, this is something I have and wearing overtly, you know that I have diabetes,

Scott Benner 27:10
that it sort of just became the way you did it after that. Can you imagine there would have been a time? I don't know, years later, where you wouldn't have minded something being unattached to you. But you just never thought back on it anymore. Is that what happened?

Lauryn 27:22
Definitely. Yeah, I'm just kind of stuck in my ways. I think as I got older, I'm like, I got this, you know, my agency is fine. You know, I kind of like do my own thing. But I think it really would have been more beneficial. It would have avoided a lot of lows avoided some highs being more in tune.

Scott Benner 27:37
So you said your agency was fine. So what what were your goals? Like? How did your doctor setup? You know what you were shooting for? Yeah,

Lauryn 27:43
that's a great question. So I think part of it was age. So like, when I first got diagnosed, my agency was like, 8.5, not proud of that. And then as we went on, he was kind of like, alright, we want to see go into the sevens. And then ideally, we want it to be 6.2, or five or something like that. But I will say not having a pump was really hard to regulate. So that should have been a kick in the pants for me when my agency fluctuated between sevens and 7.5, things like that. But I kind of didn't know, I think the extent when I was 21, that that was like that. I was kind of like, oh, you know, I'll work at it. I exercise I eat well, I, you know, do these things. But

Scott Benner 28:19
you know that I was just talking with someone the other day about this, and the idea of an agency, not just yours, but that moves around like that, like, you know, because the difference between a 6.2. And a seven and a half, for example, could just be a handful of fatty meals that create rises that take forever to come back down, and you're not really doing anything about it, because you're not looking. And that really could just be the difference there. But what is it about the system that teaches people with diabetes, how to help themselves, where it's not more of an imperative when that happens? Like it's more of like, I mean, what you just described is very common, like I'm doing, I'm trying like you don't I mean, like I'll we'll we'll give it a whirl again, three months from now and see what happens. We'll you know, we'll spin up that test and see where I got, instead of like, why isn't it like, Oh, my closer on fire? You're gonna be like, like, when when your blood sugar's 250 for five hours, why is it not? Like, why do people not think, Oh, I have to fix this right now. Instead, they go on? Maybe I'll get it right March. Like that's, I don't I don't know what the answer to that question is, but it's interesting. Yeah,

Lauryn 29:27
absolutely. I think to not to blame any doctors because it's not their fault. I think there was no like, urgency. There was no like, part of my education was like, this is your goal, but like, right, except there was no consequences. And I'm a behavior analyst for a living. So now I kind of know how to like change my behavior, but I think there was no one holding me accountable ever unless it was every three months. So there was no immediacy it wasn't, you know, I didn't have a pump. It didn't warn me when my blood sugar was 250. I had to check it next time I ate and if it was 310, that stinks. And then I corrected it. So part of it was Yeah, exactly. There was no one kind of constantly You're telling me hey, this is for your long term health, this would be really valuable for you.

Scott Benner 30:04
Yeah, no, I just always think about that. Like, I don't think it's apathy. I just think people don't know what they're supposed to be doing. And therefore they it all just kind of jumps from like appointment to appointment, which are usually three months apart. And then they say, one see pops up, and they go, Oh, better, worse. Same. That's it. And then just, we'll see what happens next time. And I noticed it's an odd way. And I was interviewing a type two recently. And the feeling that I got from this person, that basically the doctor looked at them, oh, well, you lost you got type two diabetes, I guess your life's not going to be as good or as long. Use this and get out of here. And you know, eat better and exercise. And that's just, it's just such a strange thing to me here. Imagine if you went to the hospital, and you said, I have a valve? It's gone bad. My heart. I need I need you to clear the valve open and then no, you know, it just yourself, say like, it's so weird. It just it's very strange to me. Okay. You just said that you're what do you do for a living?

Lauryn 31:08
I'm a behavior analyst. I do ABA therapy with kids with autism.

Scott Benner 31:12
Oh, thank God, I thought you were like judging me right now.

Lauryn 31:15
I get that a lot. They're like, Are you studying me? Like, no, no, no, not that kind of,

Scott Benner 31:20
like, I haven't been nervous making this podcast ever. But it's gonna happen in a second. Because you were like, can we use the camera? And I'm like, Sure. And I'm like, Oh, God. She's like, watching the camera. Yeah, I now believe you're looking at me thinking you're not Jewish. Seriously, but all my Jewish friends. So I'm adopted, right? So for many, many years, I had no idea about my lineage whatsoever. But every one of my Jewish friends was like, Yo, you're definitely like, came from Jewish household. And I was like, I don't know. It turns out furthest thing from the truth. I finally found out I'm like the product of so my birth mother. It was just like a, I don't want to say hillbilly because that seems wrong. But they were from a rural place. Okay. And it seems that they traveled a great distance. Have I ever said this on here, Lauren? I, I'm not sure. I'm thinking through my own recollection. There's 800 episodes. So they traveled. My birth mother, who was the oldest, I believe have nine children traveled from pretty far south to pretty far in the northeast to track down their cheating father. Oh, the plot thickens. This is what I've been told. I believe my birth mother was around 19 or 20 years old when this happen. They ended up staying in the Northeast for a while where she became pregnant. The mother, which I guess would be my grandmother was able to corral the cheating man and take him home. But they did not let them take the baby home. They didn't let her take the baby home, which would be me. So they made her give me up for adoption. And then they went back to I'm assuming the side of a hill that they live on or something like that. Now, you're looking at me now. And you're watching me speak with my mannerisms, everything and you're saying it's a good thing. They left him out here. I think that I look at myself. And I think, honestly, I'm totally going to be Ned Beatty. If if they take me back. You know what I mean? Which is their loss? Yeah, the bad reference that most people don't get, but it's not the point. Anyway, um, that's what I don't know why I told you that.

Lauryn 33:41
Thank you for sharing it. You're very welcome.

Scott Benner 33:43
Oh, and I have another thing I want to ask you. When you say that's a good question. Is that a conversation technique? Or do you believe it's a good question?

Lauryn 33:52
I genuinely think it's a good question, because it forced me to think about it. Okay. All right. So this is my first podcast. I don't know the etiquette. There's no

Scott Benner 33:59
etiquette, you're doing great. Oh, thank you. But no, I mean, I mean, there are conversation techniques that people use. And I think that's a good question is one of them. It gives people time to think. Right? And, and so it gives your brain a minute. And you don't have to begin to speak right away. So what it generally means is, oh, you've just asked me a question. Somebody hasn't asked me before. That's the idea, right?

Lauryn 34:25
Definitely. Yeah,

Scott Benner 34:26
I learned gonna make a joke. And now it seems wrong for me to even say, I was gonna say something like, I learned that when I was abandoned in

Lauryn 34:42
bringing out some triggering info, but I

Scott Benner 34:44
was too young for that. So that is not to the joke didn't work. And then I thought, oh, people often find that funny. Anyway, had I been in a group home for a number of years that I could have said, like, oh, I learned that in the group home and then that would have been funny. But anyway, that's still good. Yeah, that was quite a departure. But I know where we are so great. So you are living as an adult on MDI. You're not struggling with your agency, because nobody's telling you, you're struggling. But do you have an internal feeling you'd like it to be better?

Lauryn 35:12
For sure. Yeah. So after doing like my own research, I was like, I definitely should be at a different level where I'm at. But again, I couldn't bring myself to get the pump, even though I knew it was like the best next move. So I would do things like I'm just gonna like, check it more frequently, I'm gonna, and I actually like used to mess I don't know if I should like Mitt this on a diabetes podcast, but I used to like mess with my insulin counts, like my cart ratio kind of a little bit. And I would like reduce my Lantis a little if I like, ate like less, or like, things you're not supposed to be doing as someone without like a doctor's oversight. So

Scott Benner 35:46
it's super interesting that you said that. So I'm going to guarantee you that 89 point 17, one finds the all way up is almost 90% of the people listening to this podcast are like, Oh, she's delightful. These people are moving their insulin around all the time. And I would, I would argue that that is what you should be doing. Because you can't make an adjustment three months from now, from something that happened today. It's not going to be meaningful. And the entirety of how we have this system set up for people, I think is wrong. I think if you listen through, I know you've heard the podcast, but don't listen, listen to it. There's a series inside of the podcast called diabetes pro tip. If you listen to that, you wouldn't have said that, you would have said, Scott, you would be proud of me, because here's what I did. And because that's how I think I think that the entirety of managing type one diabetes is understanding that diabetes is about timing and amount, mostly, you have to use the right amount of insulin at the right time. And that those things are going to change based on your activity variables, and even just the glycemic value of the food that you're eating, which changes from meal to meal at times.

Lauryn 36:55
Absolutely. And everything affects it like coffee spikes, my blood sugar, where I think for some it like totally doesn't affect it at all. And I definitely outed myself for not saying I listened to the podcast, because I agree that would have been a normal thing to say, you don't

Scott Benner 37:08
have to listen to me on the podcast, by the way, so don't worry about that. That's not Yeah, yeah. No, I just think that that's good. I wish you would have gotten to it sooner. But I mean, I think that's amazing, like the, like, what do you do during an illness or your period? If you're not willing to manipulate your insulin to fit the need? Yeah, you know,

Lauryn 37:27
so I, the biggest thing is that I didn't know I could, if they had told me like, Hey, this is something you just kind of figure out as you go, I think I would have been a lot less stressed about it. I was very much like a rule follower. I like always did at the same time at the same you know, all the things and then as I got older, I didn't drink alcohol for a really long time because I didn't know how that would affect my blood sugar. And then when I actually drink alcohol, that was like a huge adjustment like knowing how to navigate the really highs and really lows. But yeah, no one really tells you that I think I was too afraid to ask those questions to like, hey, what happens if I get super drunk and I forget to take my nighttime insulin? You know, what are the repercussions?

Scott Benner 38:03
Well, that's, that's interesting. I say that. repercussions are alcohol drunk. We have an entire series of after dark stuff. You could have come on here and talked about sexual abuse. We'd one girl came on here and talked about being diagnosed during a heroin bender. You can say drunk. There's no I told you before we started I don't care what you say. Did you think I didn't mean it? No, no, I

Lauryn 38:28
just double checking. Like,

Scott Benner 38:30
there was a moment. Just imagine there was a moment I was interviewing somebody. And she spoke about escaping from her grandfather's house, I think where her family had put her to try to get her off of drugs. And she jumped out a window. And she was basically loose in the town looking for heroin. And at that point, went to DKA. Oh, and that's how she was diagnosed with diabetes. That's why I just looked up at you and you're like, it's hope it's okay. If I say drunk,

Lauryn 38:58
you're like, four times.

Scott Benner 39:00
drunk. I would prefer your story was better.

Lauryn 39:05
Well, I can tell you what happened a few days ago at my workout class. It's not the same. I had to leave early because I had our super super low in my insulin. My pump was going bananas. It was beeping it was so embarrassing.

Scott Benner 39:17
I was looking for math. And so was at one point, or I guess I don't even know. But during this progression, do you end up with a CGM ever?

Lauryn 39:29
I do have a CGM? Oh, you're saying back in the day? I did. I trialed one out for a while it almost just kind of like didn't make sense because I didn't have the pump. So I kind of put it off. And then when I went off of my parent's insurance, I was like, I can't afford this $8,000 piece of equipment. So which I could have because it would have been covered which I didn't know. So that was actually a big barrier to financially until I realized I'm like we insurance absolutely covers this stuff. Like I think I was looking for excuses not to get it. I was gonna

Scott Benner 39:59
say you're either You're a paradox somehow where you were kind of lying to yourself at point. Yeah. Right. Because you're, you've said a number of times. You're like, I can't do this, but turns out I could have. Yeah. Oh, yeah. So you didn't want to

Lauryn 40:12
do it? 100% Yep. Okay. Yep.

Scott Benner 40:15
But you call yourself a rule follower. So if someone would have told you that it was imperative to have a CGM, do you think you would have just done it? Probably.

Lauryn 40:23
I think that that would I mean, and my doctor did say he's like, this is definitely the best course of action. But again, when you're 20, and you're kinda like, you know, I just didn't want it on me. And it was like a whole thing. Even now.

Scott Benner 40:35
You worked at a hotel. You said when you're younger? I did. Is that like working in a restaurant? I've never worked at a restaurant. Here's the thing I want to ask you. They say that restaurant employees do a lot of intermingling after hours. Does that happen at a hotel Lauren?

Lauryn 40:52
It does banana in the weird way that you're alluding. I did get some goofy people that would ask me to like take them on tours of Chicago and I'm like you are in Deer Park, Illinois. There's no way there's nothing here.

Scott Benner 41:04
It's not the part of Chicago you're thinking. Right.

Lauryn 41:06
Exactly. We have targets. Yeah. We have

Scott Benner 41:10
targeting. This is a red roof and not the red. So okay, so what I was imagining is not happening. And I don't know where I was going with that. No, no questions where it was headed. I think I was asking you if everybody was banging each other after hours. Oh,

Lauryn 41:29
that? I don't know. I guess it's possible. I wasn't. I wasn't right.

Scott Benner 41:34
If you were would you tell me? Probably. Now that I know I'm able to. It's amazing. Okay, great. Okay, so Okay, so CGM was brought up to you. You did try it a little bit. How long ago like did you get a like a real like, right now? They're amazing, or did you get sort of like one of the beginning ones?

Lauryn 41:52
I think I had a beginning one now I have a Dexcom. And I love my Dexcom. I like can't imagine not having it, but this was probably Whoo. I think it still was a Dexcom. But they were like, much bigger. I feel like than they are now.

Scott Benner 42:03
Yeah. So the receiver was weird and clunky. So did you have like the egg shaped one?

Lauryn 42:07
Yeah.

Scott Benner 42:08
Okay, so you so basically, you had one of the very first ones, it was good. I mean, I'm not gonna I wouldn't badmouth that it saved my ass with my daughter over and over again. But it was not as like finely tuned as they are now as far as the the data you get back. Okay, so you try to eat went backwards? When did you finally end up with one was the Dexcom first or did the pump? Go first?

Lauryn 42:30
I got the Dexcom first and then the pump. Yeah. And, and it's awesome. Because now you can Bolus from your phone, which is amazing. That also helped. So I didn't even have to take out the pump.

Scott Benner 42:39
So you're using the tandem pump now? I am yeah. using Ctrl. Like you were.

Lauryn 42:45
I am. Yeah. Also life changing. Yeah, let's,

Scott Benner 42:47
let's talk about that. So once you get them CGM, and you're really starting to see the benefit of it, what's the first thing that seeing the data makes you think it was

Lauryn 42:57
worth it? It was worth it. And I'm data driven. For my like career, I'm really into graphs and numbers. And I like love to graph my own blood sugar, which is probably weird. But it was really cool to see just the end range and having that percent of like, Hey, you were in range 90%. Today, that's really reinforcing for me to see it like stay within that range. Because I never had that before. I never knew what my number. It's a little obsessive. I don't know if other people feel this way. I'm like always checking it. But it is cool to know at any moment where you're at.

Scott Benner 43:25
So you like the positive reinforcement that you get from A to just like bare bones though, like when you put it on? Did you think oh, wow, I spike after every meal, or I'm low here. And I didn't realize it like and then because I'm assuming that your agency and your variability is better now than it was before that. So like, I'm wondering what you know, when you looked at it, what screws did it make you want

Lauryn 43:47
to turn like change in my day to day or like,

Scott Benner 43:50
yeah, well change in your management and how you used insulin or even how you ate or anything like that? Like, what did you make adjustments off of seeing the data

Lauryn 43:57
a little bit? Yeah, so I guess I take less insulin than I did before. That was kind of nice, because it's always giving that like basil amount, which I didn't know what basil was, I didn't know what Bolus meant, like, I didn't know really, I guess into a Boltzmann. But that's been really helpful. So like being able to like, kind of not that I don't eat what I want, but kind of eat more freely, because the algorithm calculates it for you. I don't know if that's kind of what you're getting at. So it's a little bit less thinking now than when the pens you have to like twist and adjust. Give yourself a correctional amount. It kind of like takes away some of that like mental math.

Scott Benner 44:27
Yeah, I'm not trying to get to anything. I'm trying to pull out what your actual story is like, I don't care what your answer is. I'm just wondering, that's all so good. Because what my imagination is that whether you're a person who understands insulin out to the nth degree, or you're you or you're someone else, or you're a person who's not bolusing like there are people listening, you have the stories and I think it's valuable if you tell yours so that other people can hear theirs in your story. Because, I mean, when you say you didn't know what basil was, when you were MDI for all those years Did you like let's understand what that meant? You injected basil once a day on gathering? Did you ever put it in and think this is the insulin I'm using that holds my blood sugar stable at a certain thing has nothing to do with my food? Like, did you have that understanding of it? Or was it just like a person who told you like, Hey, this is this much at this time,

Lauryn 45:19
for a long time, it was just people saying you give the Lantis at night, and then you take the Nova log in the daytime, no one ever told me that you can stack insulin, I had no idea what that was, until 10 years after I was diagnosed too. So I do think I didn't get the same. Maybe I did get the education and I wasn't paying attention or there wasn't like enough follow up. But absolutely I, they never said like your Lantis. You know, you take it this time, and it keeps you regulated overnight. And then this is your short acting insulin, they probably said it was short acting, but I didn't know what that meant. I didn't know that that was to combat the carbohydrates you ate throughout the day, I didn't know that certain foods could spike my blood sugar, I'm making my team of doctors sound really terrible. But I think it was,

Scott Benner 45:58
I think what you're doing is giving a fairly accurate assessment of how most people are shepherded through type one diabetes, like, here's enough information for you not to hurt yourself, you're not really going to be able to help yourself too greatly, because you don't understand a lot of the moving parts, because we haven't told them to you. And because I'm guessing of the age you were, when you got it, you were sort of like I don't really want to know about this, this sucks. I want to go to Israel, I want to work in the red roof. And I want to you know, I'm gonna go to college, I'm gonna learn things, then by the time you come through it, I think that the direction you got was good enough that you were generally healthy. So you had no reason to look and go, Oh, I'm not doing this, right. Whereas you can hear any number of interviews on here, when people come in, they're diagnosed at your age, they don't give a crap, their health gets poor through college, then normally what happens is they meet another person that they care about, and then want to do better for themselves. Because I don't know why that is I have to ask a therapist, but But why you suddenly see value in yourself when somebody else sees value in you, or when you have a responsibility to another person, whichever. And then they have to reassess because there's so bad off. There's no ignoring it. But you were in a reasonable place the whole time. Right? So there was no reason for you to like, sit down and go, Hey, Google, what is Basal insulin? Or what you don't I mean, like, really? Tell me, what is this thing I'm doing? Because you were doing okay, absolutely. What makes you want to understand it better after that? What do you not? Are you just like, hey, this algorithm works? And I'm gonna give it crap. Why?

Lauryn 47:40
No, no. So actually, within the last year, part of it is actually having a partner who's in the medical field, and I think he kind of pushed me to be like, hey, yeah, right, which, like, unfortunately, it took maybe another person, but you know, kind of saying, like, hey, there's all this stuff out there, like you should really be, you know, checking it out, it would improve your life, it would kind of, so I think slowly, I was like, You're a, you know, like, I've kind of put this off long enough, I am an adult, I need to, like take care of myself. Also, just being in a job, that's kind of stressful, and like, moves out, like the day to day is always changing and kind of meeting to be a little bit like, I don't eat at the same time. So having a pump really keeps me accountable. And like maybe reminds me if I'm going low, were things like that, just like my life has evolved. In general, I've gotten more education, I have a master's degree, I really enjoy research and articles. And I'm like, Why haven't I applied this to myself? So it kind of was like a bit of awakening, but it kind of took a little bit of my partner being like, hey, this, this exists, this would make your life better, you should look into it. And then you're an

Scott Benner 48:36
anomaly on the show, in that you weren't like, in a really bad situation. Or you weren't the kind of person who either was super type A and like, I have to understand all this, or had a parent who was up your, you know, because you were diagnosed, like we're going to take care of it, and you just go to college, and we'll we'll stay on top of everything. You're lucky. I don't think I don't know that you know that or not, though, guys. A lot of people with diabetes, like your path is lucky. I think that's my assessment, whether you're not really asking me to assess you, but like that, really, based on all the people I've spoken to you I think you've got B and the reason why I say that is because I've also spoken to a lot of people who are much older, who can talk about their life, like you're talking about a little in retrospect right now. Not a lot, right. But I've spoken to people in their 60s in their 50s in their 70s sometimes who've had diabetes their whole life. And when they look back, and they're still healthy now, they have no idea why. And we pick through their stories. And sometimes their stories are just they got lucky along the way. I think you're one of the lucky people.

Lauryn 49:48
That's really nice. I've never been told that about my diabetes. Appreciate it.

Scott Benner 49:52
I am absolutely going to have to get I'm gonna have to keep this going for a really long time. Back on when you're like 54 I

Lauryn 50:02
check it in 10 years. Yeah, thanks.

Scott Benner 50:03
How old are you now? Would you just 3332 32? Hold on a second. I'm 51 years 32 You don't I can't make a podcast and I'm in my 70s just be an old man clear in his throat the whole time. Like you. I'm so dry, my teeth are sticking to my teeth. You could people do it all the time. How many people are speaking to speak to their older parents? And before they talk about mom take a drink before we start the throne. Anyway, I know that might be weird. That's, I mean, let me ask you. Is that strange to hear? It is?

Lauryn 50:45
I've never been told that. I do think as you were kind of talking, I'm like, did I just like cruise through the last 10 years of diabetes? And was that all like, cruises? Maybe? Like a?

Scott Benner 50:55
No, no, I didn't want to say that. But yeah, maybe I did.

Lauryn 50:59
Like I never thought about it that way. It kind of just like was what it was, you know, like,

Scott Benner 51:03
you're like the character at the end of the action movie who's not dirty? And everybody's like, why are they still alive? I was gonna die in the first

Lauryn 51:16
I will say the first like, three years were really rough of just adjustments. And then I think I just kind of like accepted it. I think I was just like, there's no other option. This is just part of my day to day. And again, I feel very lucky. I have an incredible support system. My dad's big into like mindfulness, and like, you know, whatever. And I think that rubbed off on me because I practice that stuff. And I tried to practice just self care and giving myself a break when I've tough days. My pump is beeping right now, by the way, I don't know if you can use the

Scott Benner 51:46
only podcast the world where nobody cares. just wrote down but I think is the title of this episode, which I think you're too young to get. But oh, no, I might call it Last Action Hero. It's an Arnold Schwarzenegger movie. parody movie. Anyway, that's, that's where I'm at right now.

Lauryn 52:05
I'm just a big paradox. Either that or

Scott Benner 52:07
I'm calling it something about Shabbat goibibo or something? I'm not sure those are my those are my ideas right now. But no, and I don't mean this. And you're obviously taking it the right way. I'm not being I don't mean an insulting way. I don't mean like, Oh, you were just a big dummy. You got lucky. Like, I'm not saying that. I'm saying you were doing what you were told to do. But it actually worked for you. You know what I mean? Whereas a lot of people get told what to do. And they stick to a very strict regimen. And it doesn't work for them. Maybe for reasons of as it might be as easy as their activity level or the kinds of food they like, maybe your meal choices just fit well enough with that, that you had nice outcomes. Maybe you were a person who exercised consistently. And so you know, you had some highs, but they were maybe brought down by who knows. This is fascinating.

Lauryn 52:56
Well, I will say so hot take but I like eat the same foods all the time. I probably learned that from like my grandmother who's type two diabetic that just like everyday ate oatmeal and a sandwich and whatever. So that really did work. For me, I think it was really hard for me to stray like I didn't drink alcohol, like I said, like, for a number of years because I didn't know what the outcome would be. So I'm very rule governed in the sense that like, what works for me, I kind of stick with, but I still had highs and lows. Like my agency still was kind of goofy up until like two years ago. Now it's in the sixes, which is great. But shout out to that.

Scott Benner 53:29
Thank you to all the people who made up all the algorithms because honestly amazing Dexcom like somebody said to me one time Dexcom is expensive. I was like, Listen, you know, this is the wrong place for this. But you know, people make businesses to make money, I don't care what they're making nobody, you don't have a cell phone, if the guy who came up with it first wasn't like I really want to make a bunch of money. And I think this is how I can do it. And then, and then once they come up with a product that really is great. You want them to innovate it and you want them to make it better, faster, smaller, whatever, whatever the hope is for it. And I don't know what people think but that takes money. It takes people it takes smart people and educated people those people want to get paid. And you know like so. I mean listen, I wish everything was cheaper for everybody and I genuinely mean that but I am also I want these companies to exist and I want them to thrive because you're we could go back in time and find a 19 year old you and slap a present day Dexcom G six in this control IQ on you. You probably have a six a one C for the last every year you've been alive, you know so my biggest regret. Really? Is it really

Lauryn 54:41
a little bit I traveling maybe not being biggest. Yeah, it's up there.

Scott Benner 54:45
No, I want to know what your biggest regret is. Oh,

Lauryn 54:49
bangs your bag. Yeah, I have a big forehead. They look silly. Anyway, Oh,

Scott Benner 55:00
my gosh. Well, if bangs are your biggest regret, and you're being honest, and I think you're doing okay. Okay, so you're, obviously this boy is gonna marry you. It sounds like you're gonna one week. Whoa, you're getting married in a week, next next weekend. She's 17 In Chicago, and Chicago for you. Isn't that nice? Congratulations. So what I was going to ask is, do you think you make little babies one day or is that not on your radar?

Lauryn 55:30
I hope so. That's the plan. Yeah. Hopefully they won't be you know, full of health conditions. But if they do, that's okay.

Scott Benner 55:39
They won't be full. Does the fiance have any autoimmune on his side of the family?

Lauryn 55:45
His mother has, I believe? Hashimotos. Okay.

Scott Benner 55:49
Well, yeah, you're gonna explode probably that. But that's the only thing that I know. One day you'll be holding up a little kid going down. Michael Jackson had this too. For reference, I know. Right. Well said for the logo. I need a better reference for that. Famous people with vitiligo so I can go on Hold on a second. Let's figure that out. I'm gonna edit that one. Well, no, I'm not gonna edit out. I'll just say it again. There'll be funnier that way. All right. Hold on. Famous people have been a Lago. Winnie Harlow. Okay, there's not a ton of people that don't know hold. Well, okay. So all I Googled was famous people with vitiligo. And now I'm scrolling through a number of people. I don't know. Like, you're waiting for someone to like, just jump out. And you'd be like, Oh, I know who that person is. Okay, Jon Hamm. I know that oh, wait, Jaya. Jon Hamm is the actor madmen God? Yes. Who is what is he famous for? Test your level of depravity.

Lauryn 57:06
Bridesmaids, huh? No.

Scott Benner 57:11
Yeah, yeah, he's got the energy. And so I that and Shabbat Why do I know this stuff? Okay, Rashad. Rasheed Wallace was a basketball player. People might know him. And then Winnie Harlow is a model who I feel like I recognize Google. But I gotta just tell you,

Lauryn 57:30
Oh, yes, yes. Yes. She's beautiful.

Scott Benner 57:33
You scroll this list. Michael Jackson is the only one that jumps out to you. Because I know that is. So that's Graham Norton. I guess if we were British, I would have known that. Also. He I don't know how that's possible. Anyway, this is not the point. Yes, it was a bad reference. But as we've proved, it was really the only one available to me. It was yeah, that was Yeah. How many emails do you think I'll get now with people who are famous within a Lago? I'm gonna go over understand. That's okay. I'll take those emails, those likes. By the way, you don't know this. But last night, I got in bed, and I got this, like, crappy text message. Right. So I just added a phone to my account. And I'm going to use it just for the podcast and work and stuff like that. So right now, I'm getting a lot of like, spammy texts. And some of them are very funny. They're popping up. While you and I are talking.

Lauryn 58:31
Are they diabetes related?

Scott Benner 58:34
Oh, no, these are not from anybody. I haven't given anyone this number yet. This is like the thing happens, like when they recycle someone's number, and you start like so. Anyway, I've gotten one recently. And the sender was, it's a group text, and the group is called, also. So this is obviously not somebody I actually know. But I just want to give people context that these are I'm in someone's group text right now. That's wild, who I don't know, I can't even read some of these

but I'm trying to talk to you. I'm talking to you and all my screen pops up. All said I'm like, you've got to be kidding me. You would really like some of the podcasts so do and I don't want you to feel like I don't actually listen. No, I mean, like the more management stuff, I think there's some stuff in there you would enjoy like you said like you brought up stalking insulin. And you said it sort of like it's the sum this thing like a rule like you can't give yourself insulin in certain like what do you think of what do you think of stacking insulin so like

Lauryn 59:39
taking my insulin for my meal and then also like a correctional about so basically when you give like too much at different times, they can't like work at the same time.

Scott Benner 59:49
Hmm there's an Episode Episode Four four you can correct is the is the defining diabetes has a whole series of terms that get defined. So they're shorter episodes where It is a Is it me? Me and Jenny? It's not I was gonna say I, oh my god, me and Jenny.

Lauryn 1:00:08
You're gonna make a Taylor reference Taylor's reference Taylor Swift record. What's

Scott Benner 1:00:11
Taylor Swift reference would I have made? If I said that you were

Lauryn 1:00:13
like, hi, it's me on the podcast. It's me.

Scott Benner 1:00:18
Right? That's a look into your problems, not mine. And so, so. So there's a defining diabetes episode called stalking insulin. Where I explain along with Jenny, that stalking is a real thing. You can't just like willy nilly, give yourself insulin at 1111 1011 1511 30, because eventually, it's going to all catch up to you and crush you in unless you need the insulin, then it's not stalking, that's Bolus thing. And that's a nuance that it gets lost on people. Because I think generally speaking, doctors don't want you obviously, to end up with too much insulin on board and get low. I don't want you to do that either. But what that leads to sometimes, is people like in a grazing situation, like in a party or on Thanksgiving, who eat 15 carbs and Bolus for it. And then 20 minutes later, they have 20 more carbs, but they think, Oh, I can't Bolus for this because that would be stacking. But that's not stacking. That's Bolus thing. And there's a difference. And you should, if you understood that, it would really go a long way towards them not only not getting high, but that crashing low later, a lows come from highs, you know what I mean? Like when you get really high, you eventually end up using a bunch of insulin, and then that food is digested out of your system, but the insulin remains behind a roof, you know, like your then you fall through the floor. So using the insulin mindfully, and where it's needed is what's important. Anyway,

Lauryn 1:01:43
yeah, no, absolutely.

Scott Benner 1:01:44
What I had on that I set out. Well, good reminder, I'm telling you for you. There are algorithm episodes, there's one called control IQ ninja, you should totally check out. I have

Lauryn 1:01:56
listened to that one. But it's a good refresher.

Scott Benner 1:02:00
And even just the pro tips in general, basically just talk to people about how to use insulin. So and I think that helps. Whether you're excuse me, I think that helps whether you're on MDI, a manual pump. Isn't that funny? Now that there's an algorithm pump, regular pumps need a name? Yeah, the manual is not right. But it is. But it's original, og pumping, whether you're OG pumping, or your or your algorithm pumping, still understanding how the insole works is important. That's actually one of my, I wouldn't call it like a huge concern. But I do. I do think that there's a possibility that somewhere in the future, like we talked about earlier, someone's going to get diagnosed slap on a CGM, an algorithm, and never learned about diabetes at all. And maybe that's not going to matter. But I don't know, maybe it should, I think it should matter. It matters to me, I think people should understand how their insulin works, I will

Lauryn 1:02:54
say to something that I thought was an underused service that I didn't get until I was older to was a nutritionist, which seems really simple. But I've been seeing one now every year just to kind of maintain and ask questions. My diabetes educator is also there. And she's actually the one that recommended juice box, by the way, the diabetes educator, she's lovely to her. But she basically was like, it all works together. So if you don't know what a carb is, or how much sugar is in something, or how it affects you, like, all of that is in conjunction with what you're already doing with insulin, and carb counting and things like that. But that was something that I was like, Well, now that I know, like, all these things, I'm like, Why didn't I see a nutritionist? You know, many, many years ago, just in like looking back, that would have been really valuable to

Scott Benner 1:03:37
the simplest thing that no one would tell you. For reasons that pass understanding is that 15 carbs of a baked potato and 15 carbs of white rice and 15 carbs of something else all impact your blood sugar. Definitely, yeah. 100% But they all they tell you is count your carbs and put in your insulin. And then you're like, I don't understand why my blood sugar is high. Like or, like silly things. Like the one that pops into my head most recently, is that a, the riper a banana gets, the harder it hits your blood sugar, because it has technically has more sugar as it's ripening, right? But yeah, no one tells you that, you know, and then it's just and then you go along, eating, you know, bananas, blah, blah, blah for so long. And then all of a sudden, you're gone. I don't want to eat this one. But I will and then boom, I don't understand what happened. diabetes is so unpredictable, you know, and you start saying things like that, where? Turns out it was very predictable. You ate an incredibly ripe banana. That's why you different high sugar. Yeah, that's super interesting. So okay, so you're not concerned about about having children. It's not your head. How do you share your diabetes with your fiance? I'm interested in this because you've had it for a very long time. Is it something that he's involved in? Is it something he's not involved in? Is it something he understands, but doesn't touch like? How does that work?

Lauryn 1:05:00
Yeah, definitely. So he's a dentist. So he's definitely learned a little bit about that. He's got patients that have high blood sugar issues and things like that and understands diabetes in general. So I think it was really helpful to have someone with like, kind of a background a little bit in it. So I talk about it constantly. Like he definitely is like, Oh, I know that coffee spikes your blood sugar, so I don't feel that I've like kept anything. I used to keep my agency from him when it was kind of high, actually. So that is something I was like, a little ashamed about, like, I'm not telling you what it is this time. But normally, I'm very open

Scott Benner 1:05:31
out of embarrassment or because you thought it didn't make like a good good wife. Like, I can't let this guy I'm trying to I'm trying to get some of this sweet Dennis money here. So

Lauryn 1:05:44
yeah, we first started dating, I couldn't use the shoot up joke for like six months. I'm like, I gotta like, make sure he's in it for the long run, you know?

Scott Benner 1:05:53
Something so he, so let me like put you in a scenario. You get the flu shot, by the way, hope you did not get the flu. But you get the flu, and you're really wrecked. He can help you with your insulin. Could he make decisions autonomously? Or? No?

Lauryn 1:06:06
I think so. Yeah, definitely. I mean, we've been together long enough to I think he kind of like knows how everything operates. He's he came with me to or he like understands like the control IQ had to like put, when I first got the pump, I could not figure out how to get the insulin into the like, what is it even called? I had to like read the instructions for a full like three days. And I'm like, okay, so you flick out the bubbles. And he like helped me with that. He like understood how that works. But again, like I had only done it maybe twice at the at the, you know, doctor's office, and I was like, I get really nervous. Tandem customer service, by the way is 15 out of 10. They are incredible. They were on the phone with me. Yeah, for so long talking through step. So my point being is that he's watched me do it now a number of times that he can help with that and understand them. So

Scott Benner 1:06:55
I just changed the title of your episode, when you didn't know what a cartridge was. I'm now calling it I'm now calling it lucky Lauren.

Lauryn 1:07:05
Like you just live in ignorance.

Scott Benner 1:07:08
What's this thing I'm holding? What is this? It's a pen. You've been using them since you were four. Oh, it's wonderful. Every time I want to write something down, it's there. And it works. It's really It's terrific who made this thing. I love the way I imagined you're not a stressed out person. I you know, I really try not to be ya know, like you have anxiety

Lauryn 1:07:32
100% in a Jewish household my whole life. But I do think that the anxiety has also been really like motivating because I like I'm afraid to like do something wrong. So I think diabetes has actually helped me manage my anxiety, which I don't know if that's weird to say, but

Scott Benner 1:07:47
Well, it is fair to say because no one's ever said it before. But I appreciate what you're getting at. Let me pick her up for a second. Do you think you have diagnosed anxiety? Or do you think that you've just lived in a you know, this is so weird now because of the of what's going on in the zeitgeist right now. And by that, I mean Kanye West losing his mind. I so badly don't want to make a lot of like Jewish jokes, which I do see is very light hearted. For instance, when you said you're marrying a dentist, I thought, well, of course you are a crochet, all right, your mom was not gonna let that not happen. And so but but um, do you mean real anxiety? Meaning like diagnosable anxiety? Or do you mean that like, energy that I don't know how to quantify, but every one of like, I have a very good friend. He's a cliche, is the best way I can say it. Like he's vibrating and worried about everything. And we can have these great conversations where we complain about the whole world. I love complaining learn in a way that is hard to put into words. I just I don't I'm not really upset. I just love to complain. It's like one of my favorite pastimes. I can't even do it around my wife anymore. Because she hates it. But I get together with my buddy. We can complain about anything. Like like anything, and it's like a sport. But he is I've never met a person more worried about everything in my entire life. And I don't know if that's literally genetic. Like, if it's just if it's passed down, if it's learned, I don't know what it is, like, I don't know where it emanates from, like, I've heard Jewish friends say, whose parents were kind of like, grew up around the Holocaust, right? Like not they weren't, weren't directly involved, but maybe they were the children of somebody. And that they say like there's a sadness and a worry and this feeling that something bad is going to happen that they live with. And and that maybe that's where that kind of comes from. And I don't disbelieve that i They say that the potato famine had like a major impact on on Irish people and that's why you see a lot of depression. I don't know if that's true or not, but I've heard it bantered about. And so anyway, that's what I'm on. Make like, do you think you're, like clinically anxious? Or do you think you've just lived around a lot of anxiety? For sure.

Lauryn 1:10:06
So to answer your question about like generational trauma, I think that's totally a real thing. I think I grew up in a household where both my parents or my dad's parents were Holocaust survivors, and he was always anxious about, you know, where his news would come from. So he over bought groceries when I was a child. So as a kid, for sure, I bet that I went undiagnosed with anxiety, I worried about everything, the weather, things I couldn't control about, you know, what I was gonna wear the night, you know, certain things that maybe are trivial now. But now, as an adult, I don't think I have like a clinical diagnosis. I think I've just learned to manage certain expectations or learn to like sit with some feelings, just practicing some of that stuff. But for sure, as a kid, I think it came from having parents that were just nervous about everything. So that made me nervous about everything.

Scott Benner 1:10:52
I can't say that I've seen it enough that it's definitely real. And the generational trauma thing is amazing. I once had an argument with someone. It was around the time of Katrina, which is a really long time ago. He says, I don't understand why those why why they didn't just leave, like how did that hurricane hit them? And I said, Can you imagine being in a situation that for the love of transportation, or the tiniest bit of money, you can't escape a hurricane. I said, that's not something that just happens. That happens to you over generations. Right? Right. Like, and it's not a thing that you don't, you're not born and decided I'm gonna grow up one day, and not have enough money to run away from actual destruction. That that is the thing that happens to you, it is not a thing you decide to do. And you and people can hear that and go, Oh, you could work hard and pull yourself up by your bootstraps, and all that, that's all well and good. But you can't pull yourself up from your bootstraps, when your boots are 50 feet down in the hole, and you can't and that's where you're starting. Right? And so I made that point to him. And I do think of this in a similar way. Like, is it funny to, you know, watch Seinfeld and go, oh, there's crazy Jews, like, like, like, you know, like, look how nervous he is like it okay. It's funny when I talked to my friend, and do I sometimes say to him, like, Man, are you okay? Like, like, this is not a real problem. Like, don't worry about this. And he and he'll say, I know, but I can't help it. You know, and it's just I don't know, like, that's not a that's not a decision you make. That's a thing that happens to you. I think. I mean, I think there are things you can get yourself out of in life. And I think there are some things that you're you're stuck with, for the lack of a better word sometimes. So anyway, anyway, I appreciate your opinion about it. Yeah. Absolutely. Yeah. So is there anything that we haven't talked about that you wanted to anything I've left out? Or we haven't gotten to? I don't think

Lauryn 1:12:47
so I feel like I definitely explored aspects of diabetes that I don't think day to day. So I appreciate like your questions. And just being you know, open to hearing my side, I know that a lot of it is kind of all over the place. So I've never really told that story fully before. So I appreciate just being given a platform

Scott Benner 1:13:02
to do so nice. My pleasure. I'm thrilled that you reached out and wanted to do it. Like I said, just the parathyroid type of thing. You buddy, what is the cost?

Lauryn 1:13:11
hyperparathyroidism?

Scott Benner 1:13:13
I'm sorry, I had it up in front of me earlier. And then I took it down to look at something completely ridiculous. That I never, that I never even brought up. Well, I appreciate this very much. I really do. It's a lot of time you took out and it's a real honest story you told I hope you feel good about it. Because like, at no point was I saying like, Wow, you got lucky. Like you weren't trying? Like I you know that right? Absolutely. Yeah. Just I think some pieces fell into place for you. That made your path clear. Maybe, you know, do you and now that you've heard me say that, do you have any feelings about hearing it said?

Lauryn 1:13:49
Yeah, definitely. I will say I don't think the initial process was easy. I think it was really tough. Like getting diagnosed. That part was awful. Like just being in the hospital for a period of time. But I think yeah, afterward, I think I was kind of just like, alright, this is kind of what it is. It's not going anywhere. So I might as well kind of learn to like sit with it and live with it and navigate the best I can and I think that part did take a lot. I'm acting like it was nothing like it definitely was a process.

Scott Benner 1:14:15
No, I don't mean easy. Like, like easy. I mean, yeah, I mean, like on a super simple level as an example. I mean that if you just because of upbringing decided to eat a pretty steady diet. And that diet ended up being one that matched well with your regimen. That's kind of lucky and you don't know it because if you grew up in a house I guess this is coming full circle now. So if this if you grew up in a house where your grandma mom said, we don't worry about we don't worry about diet and you were having a ringing for breakfast and washing it down with a glass of chocolate milk and then having kool aid for lunch along with a deep fried, you know something you would not have to say aim outcomes using the strict management that you were given from the doctor, your blood sugar's would be way higher, and your agencies would have been significantly higher. And so that is the sense that I mean, luck, right? They're not like not like, diabetes didn't come for you and you're dancing through it. Like it's singing in the rain, you know, they mean, like, just yeah, just like things lined up for you that worked out better than than other things may have. Does that make sense?

Lauryn 1:15:26
Absolutely. Right. I didn't have to change too many, like big live thing. Like, yes, my parents always ate very healthy. I've always done sports and things like that. Right. So I didn't have to change too many drastic. Yeah, life style. Yes, just

Scott Benner 1:15:38
being inactive, would have been a significant detriment to you, you know, like you'd because a one sees would go up. Insulin wouldn't work as well, like insulin works better when you're hydrate, like significantly better when you're hydrated. So if you just were lucky enough to grow up in a household where people were like, Hey, make sure you have a couple glasses of water today. That actually would be a thing you wouldn't know was benefiting you that really would have been so holy.

Lauryn 1:16:06
All right. I like that outlook on it.

Scott Benner 1:16:09
Well, yeah, I mean, listen, I've heard enough unlucky people, like seriously, like, I've heard people who grew up in households that were under educated, who didn't understand nutrition at all, who are now in significant problems. And I don't give them I guess, the way to make you understand how I feel is like, I don't blame them. And I know more than I'm giving you credit for the thing that just is is how your life was, you know what I mean? Like, I could take your exact management style, and drop it on another person, and they wouldn't be in your situation anymore, because you didn't have the idea of adjusting and moving. You would have just got what you got. Right? You know, anyway, I don't know. Right?

Lauryn 1:16:55
Yeah, we played the cards were dealt the best that we can, and you're

Scott Benner 1:16:59
the one playing them. Because if you don't meet the same cards, I might do something different with them. Right? This is my phone. All right.

Lauryn 1:17:06
I support it. You support

Scott Benner 1:17:07
it. But you don't like that. You don't like the title though? Lucky learn. You don't like it? I can tell it's fine. I think we could do better. What what do you want to do? You want to figure it out to get you want to just take it out of these text messages?

Lauryn 1:17:22
Well, that's your best one.

Scott Benner 1:17:27
What if I just said, Lauren got it? poppin?

Lauryn 1:17:32
Like that wouldn't feel like it's about time.

Scott Benner 1:17:36
Oh, you you you have to dig through the episode titles a little more. None of them are about diabetes.

Lauryn 1:17:41
Well, that's what IQ ninja was. The last one you said

Scott Benner 1:17:45
was about management specifically. Yeah. There's I think there's an episode called the frozen urine of diabetes or something like that, which trust me only makes sense if you hear it, and then probably only makes sense a little bit. I can't use that word. Your title. I don't know what. What is HR? You? You mean? Ah, what? HR? Is it like a Is it like a internet? Or are you? Oh, is that what it means? I would assume so I'm looking at right now. high rated underage users workgroup? That's definitely not it. Oh, what does it be? What is it that was from from like, a government website? HR use an acronym meaning how are you? See, you're younger than me that made sense to you? And then somebody said, Good. How are you back?

Lauryn 1:18:35
Up this group chat.

Scott Benner 1:18:36
Someone's calling me Manny. Oh,

Lauryn 1:18:38
I have an idea for a title. Go ahead. What about like diabetes entered the chat? Oh, not great.

Scott Benner 1:18:45
Oh, I don't know. See? So little on the nose, but I don't mind it. We're getting closer. Alright, so here we'll do something that I usually do at the end together. I usually I say goodbye. And then I do this. I talked to myself I go. Lauren's 32 years old. She was diagnosed in 2009 at the age of 19. She went on a trip to Israel where she was diagnosed with hyperparathyroidism has type one diabetes uses control IQ Index comm G six resisted a pump for many years. Didn't like needles in the beginning. We joked about calling the episode Last Action Hero lucky Lauren, or the red. The red riffin holy, why don't we just do that learn? That's great. All right. Yeah, let's just do that. Okay, we're just gonna call your episode. Is it going to be the red roof in? Oh, also is good by the way. In case you guys were wondering. Let me clarify that. I did not mean that. Am I gonna have to bleep this out. Now? No, I did not mean that. That also was good. I meant the guy or girl I guess if I'm being ferrous metals is doing well because they were asked how they were. And they said, good. And the person who's talking with them is also good. In case you guys are wondering, oh, there's a new tax. It's kind of late. So um, what's you guys names? Oh, am I gonna like a random chat?

Lauryn 1:20:16
That they might have just taken random numbers and put them together? Hmm. All right, who knew they got a celebrity in there?

Scott Benner 1:20:23
Yeah. Can you imagine right now if they knew what was happening?

Lauryn 1:20:29
I think the dynamic of the chat would change. Do you want me to tell them? Sure. Don't use my name. No.

Scott Benner 1:20:35
Names. Hold on. So okay, hold on a sec. You already you have time for this. I know. You're, like a real job. Take a half day at work today. I actually have another question for you as crazy. Wait, do you see me trans? Wait, do you see me transition from this back to my question? It's okay, hold on a second. All right. So I said, Hey, everyone, no idea how I got in this chat. But I am currently recording a very popular podcast, I will not tell you which one. But we've been reading your text into the recording as this went on. If you have anything to say to the people, this is your last chance. Now while we see if they respond. I'm going to ask my question, which again, I don't mean any disrespect to do you have any insight on autism is an interesting thing, right? Because it feels like it just showed up. Excuse me, which it didn't, obviously, but we became very aware of it, I guess is probably how it happened. So then common sense would tell you that in the past, people grew up on different I guess. I mean, Autism is a spectrum, right? Like so there are people who have grown up on that spectrum, who are now adults. So my question is, how many of us are dating married to related to a person with autism? Who doesn't know they have autism? Do you think that happens? Do you ever meet people as adults and think? Because you would know, right? Like, if you were talking to me, and I had autism, would you be able to like smell it on me? You don't even know.

Lauryn 1:22:03
I don't do like any diagnosing. i People always ask me this question I have experience working with individuals have a wide range of abilities. And I might be like, Oh, that matches something maybe I've seen with an adult with autism, but I would never be like Scott, you do this, this and this, you have this? No, I definitely. And for the people out there, I do not diagnose whatsoever.

Scott Benner 1:22:22
Okay, so I hear what you're safely you don't, technically you don't. But you've never been in a party like that guys on the spectrum.

Lauryn 1:22:30
I mean, it's definitely crossed my mind where I'm like, Okay, it's social skills maybe are a little subpar. Like, you know, again, like lack of eye contact is a big one. But colloquially, I wouldn't be like, Oh, every single person knows somewhat like it's definitely being more diagnosed. Now, just because like that label is maybe also no longer like, people aren't afraid of that to the

Scott Benner 1:22:51
yeah, that's my follow up. Question is, are we now just calling awkward adults autistic?

Lauryn 1:22:57
I don't think you still have to go through some like testing. But I definitely think that, like people are getting the label a lot more than they did before because they're matching certain behaviors that

Scott Benner 1:23:06
are associated with it. Okay. Yeah. Because if you think about it, like in reverse, if you marry this guy, okay. And, and 35 years from now find out that something's going on with him that was previously unknown to, you know, medicine or, you know, the general population. It's weird. Like, it would be weird to just look up one day and go, Oh, my God, I had no idea about that. And does it? And then my question is, does it really matter? If it didn't really impact anything? And does it just become trendy? At some point to say, I have this like, because that does happen, right? There's that? Um, what is it called, like, a social contagion? Where somewhere, suddenly, everybody just says, like, Oh, I'm that, you know, and then they start. I mean,

Lauryn 1:23:54
I hear you're saying, I do think people are just more open to it. I think there's less of a stigma now. So people aren't afraid to be like, Oh, my son has autism versus like, he has defiance disorder, like, which maybe he also does, but I think it's like one of those things that now insurance covers ABA therapy, but you need a diagnosis. So to be able to get certain services, you actually like need to have that requirement of having like, an actual, you know, diagnosis to get that stuff. So I think that's a big factor also,

Scott Benner 1:24:19
and would and maybe you're not the right person to ask, but when people who I'm here say legitimately, but I don't mean it that way, but like people who you know, legitimately are on that spectrum have autism, right? Is it insulting to them for someone to roll around and be like, I'm autistic, because I've seen adults do it. Like people are just like, I have autism. I'm like, what that What are you talking about? You don't like it? It would seem insulting to me. If I was

Lauryn 1:24:47
it's insensitive. Yeah, right. Right. Well, right, well, but again, but I wouldn't equate it to like if someone comes up to me, they're like, Oh, my blood sugar's low. I need to eat something. I wouldn't be offended by it. But I think because autism is like it. Community its people are very proud to be autistic to it's no longer something where people are like, I'm trying to fix these people like it's, you know, so I think that is that would be very insensitive to be like I have sensory issues, I have autism, you might have sensory issues. But if you weren't diagnosed, it's not fair to say you have autism.

Scott Benner 1:25:16
You're the first place I became aware of this, that that feeling through the podcast was a person who has PTSD said, I'm sick of everybody who's been through something scary telling me they have PTSD. They don't know what PTSD is, you know, like, and I think it'd be, I think it's one of those things that was colloquial, since you use the word I'll use it to. And then because and then because people started to understand PTSD better, it became insensitive to say, and I'm not usually a person who's real worried about what's insensitive. I guess that became obvious as we were talking, but I do in these these specific scenarios. I do think it's just shit to do. being perfectly honest with you. Yeah. You know, if you don't have PTSD running around saying you haven't. I mean, it's, it's almost like I it's almost like Stolen Valor. A little bit, like in

Lauryn 1:26:11
the say, like, cheapens the label kind

Scott Benner 1:26:12
of thing. Yeah. Yeah. Like don't don't say you were there if you weren't there. Anyway, all right. I kept you longer than you imagined you were gonna be kept, was really great. I enjoyed talking to somebody who doesn't listen to the podcast a lot. So because you didn't always know where I was going. And I was like, this is better. Okay, this was terrific. All right, I'm gonna, I'm gonna say goodbye. Hold on one second for me, okay.

First, I want to thank Lauren for coming on the show and sharing her story. Absolutely fantastic conversation. I'd also like to thank cozy Earth and remind you to use the offer code juice box at checkout to save 40% off of your entire purchase at cozy earth.com. US med. That's where Arden gets her diabetes supplies. You should check them out us med.com forward slash juicebox or call 888-721-1514. If you're enjoying the Juicebox Podcast, tell somebody else about it. We're always looking for new listeners. And don't forget the private Facebook group Juicebox Podcast type one diabetes with over 40,000 members. It's absolutely free. And there's a conversation happening right now that you would love. If you have type two or pre diabetes, that type two diabetes Pro Tip series from the Juicebox Podcast is exactly what you're looking for. Do you have a friend or a family member who is struggling to understand their type two and how to manage it? This series is for them. seven episodes to get you on track and up to speed. Episode 860 series intro 864 guilt and shame episode 869 medical team 874 fueling plan, Episode 880 diabetes technology episode 85 GLP ones metformin and insulin and an episode 889. We talk about movement. This episode is with me and Jenny Smith. Of course you know Jenny is a Certified diabetes Care and Education Specialist. She's a registered and licensed dietitian and Jenny has had type one diabetes for over 30 years. Too many people don't understand their type two diabetes, and this series aims to fix that. Share it with a friend or get started today.