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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, welcome to episode 897 of the Juicebox Podcast

Andre show I'll be speaking with cn she is the mother of a child with type one diabetes. She's from Scotland, and she's delightful. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. If you're a US resident who has type one, or is the caregiver of someone with type one, please go to T one D exchange.org. Forward slash juice box and complete the survey. completing their survey helps to move type one diabetes research forward. Your simple answers to simple questions are going to do it. That's all you need to do. Just answer the survey takes like 10 minutes T one D exchange.org forward slash juicebox help type ones help yourself. Help me complete the survey. In fact, if you need anything that the sponsors offer, using my links is a big help. It really is juicebox podcast.com. All the links are there, and they're in the show notes of the audio app you're listening in right now. Just click on the links or type them in a browser to support the podcast. This show is sponsored today by the glucagon that my daughter carries G voc hypo penne Find out more at G voc glucagon.com forward slash juicebox Today's episode is also sponsored by Dexcom. And of course they make the Dexcom G six and brand new Dexcom G seven continuous glucose monitoring systems. We just got an email from us med yesterday that Ardens G sevens are on the way she'll be making the switch at her very next CGM change. You good to dexcom.com forward slash juice box.

Sian 2:10
My name is Seon. It's a bit of a funny name. I know so it's a Seon and I live in the Highlands of Scotland in a very small village and I have four children. So life is very busy. My eldest is 13 I then girl I then have identical twins Macy and Darcy Scarlets, the eldest Maisie and Darcy. They are 11. And our fee is four who has diabetes. Maisie has diabetes, one of the identical twins

Scott Benner 2:42
are 11 years old. Yes. Identical. infers that her sibling is the girl, right?

Sian 2:49
Yes, Darcy? Yes.

Scott Benner 2:52
All right. I got it. Here's my first question. If you're from Scotland, why can I understand you?

Sian 3:01
Okay, so I live in Scotland and my husband's Scottish. But I'm from England.

Scott Benner 3:05
See, I thought you sounded awesome. I was like, Wait, what's going on? And why is she so clear?

Sian 3:10
I don't sound Scottish at all. And I've lived in Scotland for over 20 years. And if someone asked me to even attempt to do a Scottish accent, I wouldn't have a clue. I just my accent hasn't changed in the slightest from living up here. I I'm not good at accents.

Scott Benner 3:26
When you when you first met your husband, and you were around a mixed group of people and say some of them were like American English speaking. And your husband started speaking. Did you think no one understands him?

Sian 3:38
No, I always understood him. He doesn't have a particularly strong Scottish accent. But I can remember bringing him home to my mum and my sister was there. And they would just be saying, What's he saying? What's he saying? I say well, don't ask me just speak to him. Ask him to repeat it. They couldn't seem to understand him, but I always could. He's quite gentle accent.

Scott Benner 3:59
But you've heard me talk about my brother in law, right? No, sure I have my brother in law is from Scotland. Okay, and I don't understand a word he's saying most of the time.

Sian 4:11
There are some some areas of Scotland that I really, really struggle.

Scott Benner 4:15
And at the end of his statements, he often goes I which I don't know what that means is Oh, and there's like a lot of like, grunting but it's like pleasant Scottish grunting it's not, you know, it's not like it's not like German or Russian growling you know what I mean? It's just sort of like, it's like, he goes, it's like Bing, bing, bing bing like this. And he and I hear a word. I'm like, Oh, he's talking about the economy. You know? And I just start keyword listening for words about money and inflation and things like that. We're about since Scotland dizzy from I wish I knew. I'm sorry. He lives in Pennsylvania. He lives in Pennsylvania now, but because not for a split second. gotten rid of any of that accent. And I just watched him Talking and, and his face is lit up. Like he's making points and gestures, you're smiling and like nodding along and he's like, oh, and he thinks we understand this. And it's possible. He's living a completely, like muted life like, and he doesn't know it didn't he mean like, it's almost like, it's almost like he's speaking in a voice isn't coming out, but he hears it in his ears. And he believes everyone else hearing it. Just like yeah, you put your hands on his shoulder like, and then I and I'm like, yeah, and then it's over. I could have just agreed to like, wash his car. Give him $1,000. Like, I don't even know. I'm just like, yeah. I'm glad you can understand your husband. That's nice. Yes. Okay. Yeah. All right, would you? Where did you meet this boy? Why did you get drugged to Scotland?

Sian 5:52
Well, we met in Oxford. So we're both at university in not at Oxford Oxford, Oxford Brookes, which is another university in Oxford. And we met through a mutual friend there. And then slowly, he has moved me further and further, under the one CI, like, seriously, we were in Edinburgh, which is quite, quite central. And then he got me to the highlands. He's actually from Thursday, which is as far up as you can possibly go. And that's only an hour and a half from us. But I am not going any further up then than I am. Because everywhere. Even now it's an hour to the closest cities, the closest airport cinema, you know, any of the big shops is an hour. From Thursday. Oh, it's two and a half hours. So no, I'm not going any further.

Scott Benner 6:44
I think you know, you're in trouble when they're considering filming Game of Thrones where you live? Yeah, exactly.

Sian 6:49
That's it.

Scott Benner 6:51
I have to tell you, you just made me laugh. Because you're like we met at Oxford, then there was like a pause. You went? Well, not Oxford, Oxford, like, like it was it was almost like you said, Oh, we met at Harvard? Not the one you're thinking of though.

Sian 7:06
I always feel I should clarify. Because otherwise it sets up expectations.

Scott Benner 7:14
I'm talking to a brilliant person who's lost in the woods. And you know, then you're like, No, not that Oxford. A different one, not when you've heard of. It's like an annex. Anyway, so you guys are I mean, you have the background, right? Like we have a Scottish background, we have an English background, there's no surprise here at all that you have an autoimmune disease in your family. So how many of your family lines

Sian 7:47
we have no other type one that we know of, at all in the family. So it was a big surprise when Maisie got diagnosed. But it's not uncommon in the highlands. So there is a lot of type one, and that just seems to be increasing and increasing and increasing. scarily fast at the moment. But in our village, which probably has about 400 people, there is for type one children. So on a bus of 24 of them have got type one is not

Scott Benner 8:26
Yeah, they'll be able to take over and another five years.

Sian 8:30
The strange thing about it is that they don't actually talk about it. My eldest, Scarlett says that the siblings talk about it. But the actual type ones, one of them might say to the other, oh, what are your bloods today? Or right now? And they say, Oh, I don't know. 5.5, or whatever, I put a table up so I could quickly actually,

Scott Benner 8:53
you just reminded me, I don't know why your accent didn't get me to open up the conversion chart.

Sian 8:58
But so so but it's a it's a Honduras. And that's really it. Whereas I thought that they would communicate more about it. But I quite liked the fact that they don't talk about type one all the time, because it means it's not at the forefront of their mind. You know, they're they're just normal kids who have type one, but they don't need to talk about it all the time. It's lovely for the parents. You know, I've got several friends in the village now who we can support each other. But the children don't tend to stress about it that much.

Scott Benner 9:31
I guess if anyone ever has a seizure, they'll probably get stabbed multiple times with different needles.

Sian 9:36
That is exactly. You know, I my husband and I had to fly down to London for a funeral a few months ago. And I had to, I left, left all the children here and a friend was looking after them. And I said to him, do not panic, you know, well do panic if Maisie she's never had to before but if suddenly she has a horrendous hyper Oh, and she needs to have that orange injection because we still have that one. Don't I'm not going to show you how to use it call 909. But just run to any of these three people someone will be and they will come and do it for you, you know, there's always someone around that can offer some support. So it's quite comforting to have them near.

Scott Benner 10:21
You know, when you say your village, in my mind, they're like, I don't know, round structures with straw. And a little, like a little, I don't know, there's like a, like a water collection in the middle of town. And you're all within like 40 yards of each other.

Sian 10:41
Well, did I. I mean, the roads are quite narrow, and it's almost like a grid of roads. Stone cottages really?

Scott Benner 10:52
I think there's no old woman like tanning leather outside right now or something like that?

Sian 10:57
No, currently. No, we're just this tiny little village right next to the sea.

Scott Benner 11:02
That's nice. That sounds very nice, actually, except for this nice, cold. There.

Sian 11:07
It is. Yeah, it's frustratingly cold. You know, my mom is in Essex. And she'll be roasting and read Love. We really do love the summer just in France. And it was so lovely to have some heat. And up here will be freezing. I'll have the fire on and they will be literally melting. It's quite. It's quite annoying.

Scott Benner 11:27
Okay, so what about other autoimmune stuff in your family? Celiac, or? I don't know.

Sian 11:34
No, the only thing that my granddad and my mom do have a little bit of is psoriasis. Is that autoimmune? Is that something that you've mentioned before? Psoriasis? Skin? Yeah. Yeah.

Scott Benner 11:46
What about IBS? No. Okay. Well, she really is lucky, isn't she? Yes, sir. Is is an autoimmune disease. But does the CDC, the CDC says it is? So it is?

Sian 12:01
Yeah. That's really it. Certainly the we're aware of. So it did come totally out of the blue when we're Maisy was diagnosed.

Scott Benner 12:14
Wow. That's crazy. How old was she when she was diagnosed?

Sian 12:17
She was nine. So it was right at the beginning? Well, it was it was just two years ago. On Monday, she had her second diversity. So it was in the middle of lockdown. And her behavior just ah, it just hadn't been right. She couldn't concentrate couldn't focus. She was agitated. And you know, now I've just have such horrendous mum's guilt because we'd go for a walk or go for a bike ride. And she was so slow. And they're all very sporty. So I couldn't work out why she was suddenly lagging behind. So you know, I say come on lazy. Stop being so lazy. What's wrong with you? I'm going to take you to the doctor's, you know, there's something going on here. And she says, Oh, no, I don't know. But she just she just wasn't right. And then just before they went back to school, I was getting them ready to, you know, sign right in the shower, etc. And I walked in the twins at that point, showered at the same time. And I walked in and looked at them. And I said, oh my goodness, what's happened to Maisie she was skin and bones. It was It was awful compared to Darcy who just looked like this strapping, you know, beautiful, healthy child. And then her identical sister, who was suddenly just shriveled. And I was just like, basically on the scales. So she weighed herself and then I got Darcy to weigh herself amazing. had lost a stone, which is just over six kilos is that way.

Scott Benner 13:54
I love I love it that you translated it to another nother measurement that I don't know.

Sian 14:00
Okay, 14 pounds. She lost. She lost a fair bit of weight. And I got Darcy on the scales. And then I texted a friend who's got identical twins and one of them ever put on masses of weight and or lost lost weight? Or has there ever been a big gap between them? And she was like, No, you know, really only a couple of pounds. Oh, this is odd. But I persuaded myself it was a growth spurt that Darcy must have had and she'll Maisie hadn't you know, I didn't realize I hadn't weighed them. So I didn't realize that she had really lost the weight. I was just like, this is very odd, but I kept explaining it away. And then they went to school for the week. And then at the weekend, it was a Saturday. And she the three girls went off on a club. And my eldest came home and I can always remember she just walked into the kitchen, banged her hand on the table and said right I think that maybe he's got type one diabetes as it were an earth have you got that from? He said, well, she's constantly going to the toilet. We had to she had to go and go to the toilet this club, but three times she drank my water, Darcy's water, her own water. She's lost all that way. You need to phone, NHS 24, which is like the out of our number that you can ring outside. Don't be so silly. And I phoned my sister. My sister said, Well, I have been thinking about type one as well, because a friend of hers had been diagnosed. She said phone NHS 24 Do it now. I was like, No, I just take it to the doctors on Monday. You said no, no, no, do it now. I phoned them up. Thankfully, they took it really seriously and said, Yep, you need to take her to the hospital, just to the local hospital. And I remember going out to my husband, he was in the garden saying, babe, they want me to take Macy to hospital and he was off for goodness sake. This is this is this is daft. Surely not. as well. I have to you know, they've said Take care. So I have to she was around her friends on the trampoline. So she was perfectly you know, she was fine. She was fitting well and bouncing away. So I just said to Maisie, you know, you've lost all that weight. And the doctors just want to see you. She literally jumped into the car. And we drove up to the local hospital got out of the car. She didn't have her shoes on. So it was really embarrassing. Walking through this hospital.

Scott Benner 16:30
I'm a good mom. I swear to god. Yeah.

Sian 16:32
I mean, honestly, I am so sorry. She hasn't got any shoe. She's just been on the trampoline. You're bringing

Scott Benner 16:38
the news? They're like,

Sian 16:41
yeah, shoeless skeleton, and he's so passionate. You know, she looks fine. Let's just have a look. So he took a, you know, we sample and he was like, oh, oh, I wasn't quite expecting to see that. Oh, and he said, There's glucose in this. We're going to have to do a finger prick. So he did a finger prick. And he, he just straight away. He just said, I am so sorry. But your daughter's got type one diabetes? And I said No, she doesn't. He said she does. Because that No, no, she doesn't. And he said yet. Yes. She really does have her bloods at 25, which is 504 150. She She really does. And you need to go home, pack a bag and take her down to the, to the hospital in Inverness. And I said no, do you know, my husband, for some reason brought home a bottle of Fanta today. And she's been guzzling because she's so thirsty. The Fanta. It has to be that. And he said, Well, was it sugar free Fanta? Or was it? Did it have sugar? I'm not sure I found my husband's I found my husband. He's like, Oh, sugar free. I didn't want it to be sugar.

Scott Benner 17:58
Let me try it. I don't want her to have diabetes. Does that have an impact on this at all?

Sian 18:04
Obviously, now I know that a glass of Fanta isn't going to send non diabetics blood up to 400 or 50. But at that point, I didn't know that. So he was like, Okay, it's definitely it's definitely diabetes. It's nothing to do with the Fanta. So you do need to go to the hospital. You do understand this Mrs. Evans? Don't need Yes, yes. Yes, I understand. Okay. drove home. I said to my husband, they say Macy's got type one diabetes. And that's really one of the only times she cried, we were in the car, going home from the local hospital. And she said, What is it? I said, I honestly I don't really know. All I do know, though, is that I don't think it can be cured. And she was like, oh, and she just started crying. You know, I think what we both did. And when I got back home, my husband said, I can't deal with this. I'll take her to the hospital. So he went down to the hospital with her and I stayed at home with the other children. And he found out within half an hour and said, Yep, she's definitely got type one diabetes, as they're identical twins, Darcy's got about a 70% chance of developing it at some point as well. And I was just like,

Scott Benner 19:21
what's the, what's the percentage that gave you? Well,

Sian 19:26
I've been quoted different ones. I think the lowest I've been quoted is 40%. The most I've been quoted as 80%. So I don't know just a high percentage that Darcy could, and you know, there's lots of identical twins type one, certainly on the Facebook group in the UK sort of Facebook group, and whenever I see another identical twin being diagnosed, I always send them a little message and say, you know, how long between the first diagnosis and the second one And the average is normally about two and a half years. So you're I mean, there's some totally 10 years or never happened, you know, not never happened if I've seen on the group but yeah, so we're thinking could be, could be anytime. Any Cold

Scott Benner 20:17
War never your English is coming out a little too much. Here's the part of the story where you get in the car, and she's like, What is this? And you're like, I don't know, but they can't cure it. It was very blunt.

Sian 20:30
That was all I knew about type one.

Scott Benner 20:33
Exactly. Not exactly a party clown.

Sian 20:37
Bless, I'd really ever thought

Scott Benner 20:40
I'd ever get stuck here forever. I'll tell you that. Yeah. Oh, poor. Boy. My mom is cruel.

Sian 20:51
So, yes, so I then I found my mom and I said, Mom, the hospital are keeping Maisie in for about five days, and they want us both they're in me, because they have to train us both on everything. You're gonna have to fly up. So she got the sort of morning flight. And as soon as she arrived, I, I heard you down to the hospital and our, you know, our type one journey began. And that, you know, there was just such an incredible amount to learn at first. And to get your head around, and I really I struggled, I cried and cried and cried a lot. I just, I thought that our life was going to change so much. I can remember lying in the hospital bed just thinking how are we going to go away for the weekend? You know, how are we going to do anything that I'm just going to be worried all the time. But you know, you, you learned only when things get certainly easier and more routine. But at that point, I just felt completely lost. And I still feel bad feeling like that. The other three children might have felt like they lost their mum for a while, because I was so focused on Maisie and sometimes I shout out to Darcy. And I said Darcy, can you come here a minute? And she said Jimmy Maisie? No, I actually mean you this time. She was so used to be

Scott Benner 22:26
and that's pretty sad. She's like, you must not mean me you never talk to me. Right?

Sian 22:35
And Darcy is, you know, she's just so lovely. And she just gets on with it. And she never really causes me any bother. And yeah, and I think they really did lose me for a while because I just threw myself completely into trying to make this life as with Taiwan as easy as I could for for Maisie, but the rest of them, you know, I do feel sad about that.

Scott Benner 23:04
For Maisie she just doesn't want Mrs. Bad news to come back.

Sian 23:11
But, you know, I do I feel lucky. Now, in that. I find I find type one fascinating. And I could literally talk type one all day, because there's so much to it. And there's so much to learn. And it's interesting. So I how

Scott Benner 23:29
lucky I'm sorry. How did you get to that from feeling like this? Is it we're done? It's over? Yeah, we might as well just go lay down outside and let the birds pick our eyes out to two. I like talking about this. It's not that impactful and how do you make that transition

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Sian 26:56
I read a lot in the first few weeks, I bought as many books as I could on type one, I joined the sort of Facebook groups. i This can lead me on to how I found the podcast actually. Because I can remember googling inspirational. People who have got type one, or celebrities. I think I Googled have type one. And through that I came across Adam Lasher Santana's nephew, yeah, and I really liked Santana. So oh, that caught my eye Santana. Oh, interesting as a Nisha, okay, so I googled Adam Nasha type one. And that got me to the Juicebox Podcast, because he was the first person you interviewed. That's right, isn't it?

Scott Benner 27:42
It is yeah. Yeah.

Sian 27:44
And that's how I came into, you know, the juicebox world. And that was really early days. So the podcast, following on the Facebook group have been part of my, you know, support network, pretty much from day one.

Scott Benner 28:01
That's crazy. Do you know, he, so I'm, gosh, whenever this was January 2015. And I'm getting ready to start the podcast with this completely backwards idea of what the podcast is going to be. And I was sitting down and recording these episodes by myself, where I was just basically talking through my most popular blog posts from the blog. And I did it for a little while. And then I was like, This is ridiculous. This is stupid. It doesn't sound right. I wouldn't listen to this. I deleted everything that I made. And while I was trying to figure out how to proceed, this guy pops up on American Idol. Not in the heyday of American Idol, but it still wasn't like an afterthought, sort of like it was to that it is now you know what I mean? Like, it's just last UFC of singing competitions. And this guy's got type one diabetes. And I just reached out to him, and I was like, Hey, do you want to be on a podcast about type one? He goes, Yeah. And that was, I had never recorded an episode ever when I recorded with him with. So I so my first episode was with a guy who was on American Idol. And I think that helped launch the podcast a little bit. So it's how I found the podcast. And then you've all these years later, you found it. That's crazy. Yeah. Really? Yeah.

Sian 29:21
Through that. Yeah. So I just did a lot of reading. I picked up lots of tips from different places. And I just, yeah, I just found it fascinating. And we, we were sort of, you know, we've been on it, you know, from from day one, we got to Dexcom very early on, not through the hospital, but I you know, I'd listen to you and I'd read about it and I have to have this so within four weeks. We funded it ourselves, but she was on Dexcom and that made things so much easier. And now when I, when we look back on I found one of her blood glucose diaries or to go and it said that she has had a Hypo This is before Dexcom she had had a Hypo. And then she has gone on to have four fruit pastels. Do you have fruit pastels, no sweets, so she had gone on to have four suites. And then the next reading she had be like, you know 300 Why she gone to 300. But then with Dexcom, you realize she really doesn't need four suites for hypo once we is really sufficient. So the hair God the way you treat things before you have Dexcom. And the way you do afterwards, is so different. You just can't do it, you're blind, you cannot do it without some sort of CGM or Librato. So we got we got Dexcom. And then she was MDI for 15 months now she's on T slim, with Dexcom. And control Rocky.

Scott Benner 31:04
Oh, that's excellent. I just want to make sure that the people from Dexcom heard that I just sold a Dexcom. In Scotland, that's really well did Yeah, you did. I can't I can't send you all the all the data, you know, but like, listen to what you hear people say, see, I have a question for you. Yes, I, when I see your name, it sticks out, right? It's spelled differently. And I think of you as a person who really enjoys the podcast, and it's like, and is a supporter of it. And I only know, it's odd that I only really know people through you know, little avatars and their names and things like that. But I want you to, if you can't explain to me why it's gonna sound like I'm trying to get you to say something nice about me. But really, I really want to understand why you so kind of excitedly enjoy it, because I don't understand.

Sian 32:01
Well, you know, I wrote down three things that go through my mind all the time about type one. And there are three things that you have said or done. So one of the first things I did once I joined the Facebook group, I think it was, was watched a conference that you're done. At some point, I'm not sure which one but you were telling a story and you're talking about must have been odd and having some pie, and that she needed a correction afterwards. So you then you then said something along the lines of if you're if you have a pie, and mash, or whatever, and you need a correction, then just give the, you know up the amount of insulin you're giving up front, the next time you have that piece of pie. And it was such a light bulb moment, I can remember walking into the school. That just because I had to race for pickup just after and I was just like, Oh, my God, that makes such sense. Why am I doing the same thing, giving the same amount of insulin for this meal, and each time knowing it's gonna go wrong and having to give a correction. That's madness. Why Why am I not just upping the amount of insulin? So honestly, that that just went, boom, of course. And then, you know, you often say they just need more insulin, and I do a lot of thinking in the shower. And I'll be showing thinking, why is Macy's blood so high? I don't understand it. What am I missing? Ah, she just needs more insulin. And I was up oppo ratios are at that point, upper level men now obviously just change that bump a bit. And then the other one that you say is trust, what you know will happen will happen. And oh my goodness, you have to It's so true. I know that she's going to have an ice cream, she is going to go higher later. So I can give her the extended because of that. And as long as you know it's going to happen. So treat it and I can't bear it when she goes over 10 180. And we don't we don't go really near that that often. Because I trust what will happen. I trust you know what you know will happen will happen. Yeah. And it has given me so much more control. We've always been quite mindful about doing things. She does what she wants, but we make a couple of swaps that she's happy with. And we are mindful about. Sorry. We're mindful about if she's going to have a treat or something like that she'll have it at the end of the meal. You know, like Jenny said before she doesn't really have anything carby before going to bed because it's just going to mess with her levels and we don't want that. You know I want to sleep. She wants to sleep. But I have learned a so much through the podcasts. And I think I've said on on a post before, and this is a bit morbid, but I used to panic thinking, if something was to happen to me, How on earth am I, you know, I can't impart all this knowledge to Ian. And what if something just suddenly happened to me, I just, I need someone else to, to a needy and to know everything, but I can't, I can't just download everything into his brain. I don't need to panic about that anymore. Because it's all there, the Pro Tip series, or all the information that I would need to give to Ian, you've got out there. So it's a huge worry. I don't have any more.

Scott Benner 35:40
Well, you know, I'm the only one that still has that worry. Because no one in my family is gonna listen to a podcast where it's just me talking. They will, they will stare at that podcast, like, I know what's in there. And I know I gotta go get it. But I don't feel like you're and have talked about? Well, I want to tell you, that it's, it's very, I don't even know what the word is like, I feel I'm happy that it worked for you that way. But moreover, it's, it's almost fascinating for me to hear, like, my light bulb, because these things you mentioned, they're just my light bulb moments from racing origin, right? Where I, it's, it used to be me talking to myself. And I'd be like, I have to trust that this is going to happen. It happens every time. Why do I act like the next time? It's not going to happen? Why do I keep bolusing for this meal, and then correcting two hours later? Why don't I just put the insulin up front and the Bolus? And these are not, you know, they were big leaps for me at the time. You know, because I was stuck in this. Like, I don't know, I counted the carbs. And it said five units. So she got high later, I guess maybe I kept expecting for it not to go that way. And it just never did. There's one day I was like, why are you doing this? Stop doing that, you know,

Sian 37:03
we're coming across all the information from you. So early on, you know, has just been, it's made this journey. So much easier. It really has, you know, her agency is currently 5.6. She's got the clinic in a couple of weeks. I'm hopeful that it'll be it should be Dexcom, you know, predicts it will be about the same. And really that that is I mean, I'm sure control IQ helps. At night, certainly. But all of this, the ease that we manage things. You know, so much of it is down to you and the information you get out there. So thank you. Thank you.

Scott Benner 37:48
I really, I listen, I like hearing it a little more today than usual. Because lately there's been this person who's like trolling me on online. And I'm getting these like short notes for them that are like, well, that episode was hard to listen to. You know, what would make this podcast better? If you didn't speak so much? I just was no, no, no. See? And listen, if if, listen, I know how many people listen to the podcast, if one person is drawn to telling me that that's I'm okay. You know, I don't imagine that only one person thinks. But this person thinks I'm sure. More than one person thinks that actually, I got one of my best reviews ever recently, that basically said that. Listen, I don't like that guy. But this is a great podcast, and I get great information from it. And I'm thinking that's like the nicest thing anybody could say to me, like you really don't like me. And you're still listening, like,

Sian 38:48
willing to listen?

Scott Benner 38:52
Because I can't everyone's not gonna, like your personality, you know, so. So that that I thought was great. But yeah, so I think the person's giving up now, I haven't responded to them. I think they were looking for, you know, they were looking for a fight. And I Yeah, to that person, if you're listening, I'm an adult. I'm not going to fight with you. But But, but it's still, it'll still like, hate every once in a while, like, well, there's a person out there who heard that episode and was like, this is garbage. I can't, this is terrible. And then no lie. Last night. I got a note from a woman who said, I want to be on the show. And I was motivated by that really excellent episode you just put out. I love that. She goes on and on about what she's what she loved about it. And then she tells me what episode it is. And it's the one that the other person told me was terrible and they couldn't make it through it. And I was like, oh, okay, I had to be reminded that everything I say can't be universally beloved. You know what I mean? That there are just going to be people who are like, I don't like the guy you know, so Anyway, it was nice to hear that you do, because maybe I'll stop thinking about that guy now.

Sian 40:07
Yes, then get him out of your mind. You don't need that negativity.

Scott Benner 40:10
The other reason I appreciate you sharing that with me is because I actually just finished up my, my slide deck for touched by type one, which I'm speaking at in Orlando in like four days. And I went over it last night, I was like, This is good. I like the way these are ordered. I can see how it'll pull me through the conversation. I don't prepare anything before I speak. So I just I look at the slide. And I was like, oh, yeah, I'm going to talk about this idea now and then tell a story or an anecdote or give an example or something like that, move through it. And you hit on. You hit on main ideas just now that i Last night was like, Well, I have to keep this and this has to stay here. This has to stay here. Right? And you said yes, thing. So

Sian 41:00
um, oh, that's excellent. Because yeah. And the only other one that is the fat and protein, what you say about fats and protein? And then I have an app on my phone, which I think someone was it yourself. Yeah. And that's so useful, so useful. And, you know, you put all of that together, and you're left with something that is, is more manageable than, than at first you ever believed it could be, you know, same bat lying in the hospital bed and crying and thinking, you know, we were meant to be going on holiday that year to France, and it was canceled because of COVID. But we, we just went we got back a few weeks ago. And we were in France for about three weeks. And I never believed that was happened, I really didn't. I was terrified of how the heat was going to affect Maisie and having the pump and the swimming pool and all these different things. And I actually ended up being myself for 10 days, I was I'm not sure what was wrong with me. But I was completely knocked out to the point that I barely looked at Macy's Bloods, which I glanced at my watch, countless times today, the same way her bloods are out. But I didn't even have the energy to look at that. And it was it was great, actually, because it meant that Maisie really took control herself. And she did absolutely awesome. And now, I used to always send sweet emoji. Oh, that's the other thing texting diabetes. I mean, Maisie and me have done it. Pretty much from the start. I got her a watch. And she we just text and I sent her a sweet emoji if I think she's going low. And she just, you know, does a quick okay, so that she's had a sweet, but now if I send a sweet emoji instead of okay, I get already had one. And that was really because I was ill, and backed off a bit on holiday. And it gave her some time to really have to get to grips it herself, which well, she did you know, amazingly blesser I can't remember see this.

Scott Benner 43:23
No, but no, you're fine. It's interesting that you're getting ill, it was a step forward for her for her care. And for you.

Sian 43:32
Yeah, it was and, and really, type one wasn't the most wasn't the thing on everyone's mind. In that holiday. It was, you know, way down the line, everyone was more worried about me, and what was going on with me. And the practical stuff of type one had to keep happening, you know, we had to change the pump, we changed the Dexcom, etc, etc. But everything else just was just our normal life. Well, and you know what that tells me, that's all that was happening

Scott Benner 44:04
yesterday. And what that tells me is that everybody should be paying attention for moments where their kids or you know, their spouse or whoever, they're very helping other diabetes and say to him, Look, today, I'm not going to help you. Or, you know, let's see what you do. Like I, you know, I'm gonna get on a plane on Friday, and I'm gonna probably send art and a text that says, I, you know, I'm not going to be any help to you for the next six hours. So and then it just forces in the right way forces a person to say, alright, well, this is on me. I'll, I'll pay closer attention because there's probably in Arden's head, always a part of her that thinks he's got my back, you know what I mean? And it can keep you from being vigilant in the right places, you know, in the right moments, and at the same time, you make this great point that it didn't overwhelm her. It didn't ruin The day or anything like that, that there, the way you put it, I forget exactly the word to use, because you use all kinds of Europe words and not my word. But there's something about the idea of diabetes becoming very functional and in the background and not in the front of your brain, you're not always sitting thinking like, well, what's gonna happen next to my ear? She's gonna get low two hours from now, I know that that stays out of your head. How much does Dexcom have to do with your comfort? With that? Oh, has to be

Sian 45:29
100%? It's, I couldn't I honestly don't know that I'll be functioning without Dexcom. I am. I am. And I worry a lot about everything. And I am anxious. I like to be in control. And without Dexcom I would feel completely and utterly blind. Yeah, I used to, I wouldn't go.

Scott Benner 45:55
I used Ardens Dexcom. This morning, too. So this is weird. But you know, Arden is a lady, which, you know, Macy will be someday. And she's had. She has different blood sugars throughout the month. And then she has different needs for insulin a couple of different times a month. And when they change, they change pretty quickly. And I can actually see her period start and stop in her CGM data. Wow. Like I know when it's happening just from what like what's going on? Like, I'm not I'm also reasonably aware of her cycles. So I'm not like, it's not like I look up on a Wednesday. And I'm like, what's happening? I can tell by the bend of the line. But I know, I know that she's about to get her period at some point in the next day or so. Right? And just how her blood sugar is acting over the last two hours, tells me that when she wakes up, she's going to have her period.

Sian 46:55
Pass mad, isn't it? I mean, I say it's amazing. Sometimes it is odd that we have this extra view into her. You know, she had this. She had some really horrible ulcers at the bottom of her lip inside her mouth, you know, sort of by her gum, just just this weekend. And she was in a lot of pain, I think what was going on here, but I was looking at her Bloods, which were totally fine. I was like, well, she's she's not getting, she's not getting a sickness or anything. She's She's, she's well in herself. Because if she wasn't, her bloods would be going a bit crazy. And I was like, this is weird that we have this extra insight into your body. And are you getting sick? No, you're fine. And you know, they've disappeared, and she's much happier because she can eat, eat easier again. But yeah, it is interesting, isn't it that we see something in our children that other people don't? You don't if you

Scott Benner 47:55
told me I could wear a sensor. And it would report back to an app and tell me, Hey, your vitamin D looks low, your irons a little low. You know, you should probably think about eating more red meat because of this, or you know, your cholesterol is moving up like I would gleefully wear something like that. Yeah. Yeah. Because definitely, because the what's the idea? We used to say about my little brother, Rob, Rob's either actively in trouble, and you're aware of it, or he's doing something that he'll be in trouble for later. And you haven't, you haven't found out about it yet. Such a scoundrel when he was a young person. And so anyway, the point is, I would like to know that there's something afoot. I'd like I'd like to be able to get ahead of it, because because I think there's a level of wellness that is attainable. And then there's this level of wellness that we live at, like you can go on, you hear people all the time, like, Oh, I've been tired for six months. Well, what if it was just, I don't know, your vitamin B and your vitamin D was off. And you're never going to know you're going to you're gonna drain down into the point where you drag your sorry, ass into a doctor and say, I'm dying here. Like, I don't know what's going on. Then they run all this blood work. And they come back and they say, Oh, well, you know, here, here and here. Let's address these things. And then months later, you start feeling better, because you've you've made this dress. How great would it be if it just a bell went off and said, hey, you know, eat more spinach dummy, like right now. Be great. Yeah. So and it would change. You know, it would change your life in a way that you can't imagine because we don't think of ourselves that way. But you just pointed it out with diabetes, because in this one specific scenario, blood sugar, we know exactly where it is constantly. Yeah, and you can fine tune it. But now you're doing it, you know, with diabetes. So you know, so bad stuff doesn't happen quickly. But you're, you know, other levels in your body being deficient or having too much also has a poor impact on you. It just happens so slowly, you can't quantify it, you know? Yeah. Anyway, I would take that if there's anyone out there. smart enough to make that happen. I just think it would be amazing to have like the results of, of of cam panel and a CBC and stuff like that, you know, running in the background constantly.

Sian 50:34
Oh, it would be good. Oh, keep ourselves in tip top shape.

Scott Benner 50:38
I also want to say real quick sand, just in case someone does take my idea and run with it. I'm patenting this right now. You owe me money. Okay, sorry. I just wrote a piece. I will I will sue. Now. Just kidding. I mean, sounds like technology. Obviously, that probably doesn't exist. Because if it did, I don't think we'd all be getting blood draws to get you know, things checked. But I just I liked the idea of it. So yeah. What else you have? What's on that list? Yeah.

Sian 51:08
Well, one really random thing on the list, our consultant, and I had never seen anything quite like it. So you know, I like to make things simple and keep things in control. And the Macy used to get really quite flustered when she was an MDI about rotating her sight. And she used her thighs for a lot of injections. And she put it off, you know, she spent ages touching her leg, have I done it here? Have I done it there? So how can I make this easier for her? So I ordered some henna tattoo pens, and we we made this grid on her lick on her thigh, just you know, with a number of boxes, and she just went up and down the boxes, doing her injections. And it meant that, you know, she didn't have to worry about rotating because she was always rotating. She was just going up and down her leg. And I can remember taking her to see the consultant. She said, Oh, I'm just going to check your sites. And she was like, what is that it's zero, I was trying to work out a way to make rotating sites easier for Maisie. So I just got these tattoo henna pins, and we just draw on her like a grid. And she works through that. And she's like, Oh my God. I've never seen anything like that before. But it works brilliantly.

Scott Benner 52:35
It's a very good idea because people get stuck. It happens the origin all the time. She's like, this is where it goes. I'm like it goes anywhere you want to put it really. So you know, like it's and then you start getting little lumps under your skin because there's too much insulin, you have to move it around. We just well. So there's been for years, I've known, you know, obviously I was saying earlier about art and having different insulin needs different times of the month. She also has different sites that work better or than others. And I don't pay any attention to it for years, I let her put her stuff wherever she wants. There are times that she's ovulating and she's puts it on her thigh. And I think don't do that because her thighs and her thighs not as absorbent. And work doesn't work as well as a couple of other places. And during ovulation, she needs more insulin. And so I said to her recently, like look, you're leaving for college. Now, here's the thing I've been doing for you for years that you're unaware of, as I've been putting in extra effort when your site doesn't match your needs. I was like But moving forward from now on these days. And she has a period tracker. I'm like these days right here. You were your pod on your arm. And these days right here, you can wear it wherever you want. And on these days right here it needs to go on your stomach. That's great. That's great. We'll make your insulin work better for you. Yeah, situation. Yeah. So

Sian 54:02
yeah, yeah, that's brilliant. I mean anything that helps the moment Maisie always were so cannula for her pump on her tummy. Rotation is becoming a bit of an issue because, you know, she she gets quite set in her ways of where she wants to, and she won't listen to me now. So I've said, you know, two weeks, we've got the appointment with a consultant, she's going to have to tell you more about where you can put it on your tummy, because you won't, you won't take it from me. And if she favors certain points. So hopefully she'll she does listen to the consultants. She's quite a rule follower. So hopefully, if they say right, you're gonna have to move it around a bit more. She will. In the past I have used Roblox robux is it wrote books about chess vouchers to get her to do things, a little bit of bribery. has helped bless her, you know, really wanted her to try. We really struggle with comfort So most drive me up the wall. And she didn't want to move it onto the, you know, her hips sort of top of a bum area. But I, you know, I bribed her and she moved it. And that had that worked for a while, but she's had sleeping so heavily, and it's always on the wrong side. So I have begged her to move to her thigh again, which she says no. So I will be nipping into the shops on Saturday, voucher and bribing her to try again, because she always thinks on her back and the number of times I have to get up and turn it over. Oh. So yeah, a little bit of bribery. blesser.

Scott Benner 55:42
Is her personality like yours?

Sian 55:46
In what way?

Scott Benner 55:47
You said she likes you said control for both of you.

Sian 55:51
Yes, yeah, she she does? Definitely.

Scott Benner 55:54
What about her twin? Do they have similar personalities? Are they different?

Sian 55:58
Do you know it's swaps and I don't know how much type one has to do with this. But it used to be that Darcy was very confident and Maisy was a bit shy. But actually, it's it swaps more recently that Darcy is a little less confident. And Maisie is more confident that we weren't shopping the other day. And you know, they each had a cash card or some cash. I can't remember to go and buy something. And Darcy felt too nervous to go through the checkout. So Maisie went twice. She paid for her things. And she got nasty stuff and won't remember. I was like, That's interesting, because it used to have been the other way round. Yeah, I'm not sure why, but Darcy's very pragmatic. She, she's funny. She's, she's really, they're both very kind hearted. But Darcy's probably a bit more easygoing. I think that all the attention that Maisie got in the first year of her type one turns around a little bit into a monster. So we had to, I had to stop. I probably did spoil her a bit. Okay. Yeah. So I had to dial it back. dial it back.

Scott Benner 57:13
Yes. humbler? A couple of times.

Sian 57:17
Because I was told in no uncertain terms by particularly the eldest Scarlett, but yeah, I have created a bit of a monster.

Scott Benner 57:25
I love how I love it when my kids come to me and explained to me what I'm doing wrong with parenting. Oh, yeah. You know what you're doing wrong? My son's like, here's what you've done wrong. I'm like, Oh, okay. kid living in my house. Got no money. He's telling me what's wrong. Oh, my God, that's fine. But they're often right. Honestly. The end? Yeah, it's, it's, um, it's, I find it helpful, actually, you know, when they're, like, Hey, why are you? Why are you doing this? And like, I don't know, man. I'm just like, I'm tired. I'm old. Like, I just, I'm doing my best here. But I didn't think any of this was gonna happen when I saw your mom's boobs the first time, which was really the reason any of you are here. It's just how mom was just how mom looked at a shirt one day. It's got nothing. I wish there was something bigger to it. But I was like, I really want to try to see them if I can. And then here we all are. 30 years later, yeah. Oh, no. Wait, so you're asking me what I'm doing? I don't know. You're not gonna know, either. And 20 years, so good luck.

Sian 58:29
Yeah, it's exhausting. I'm exhausted and overwhelmed quite a lot of the day.

Scott Benner 58:33
Yeah. I always wonder what people do who don't have health issues in their life? Like, what would I do with all that time?

Sian 58:40
Yeah. And what would I be what I mean, my husband always says, You always worried about something. You know, I worry about type one now. But I wonder what I would be worrying about is type one wasn't

Scott Benner 58:51
CCN you and I are different. I wouldn't be worried about a damn thing. Would you

Sian 58:56
know, I was fine. Something there's no doubt about that.

Scott Benner 59:01
There's a whole other me in here that you don't know. And he would be relaxed. But I but I do wonder that sometimes, like what do they do, like I look at all the time I spend here and there. You know, like just five minutes on this and five minutes on that. And you know, forget, I'm not even talking about the podcast. It's not a lot of time in our life, but it's still time. Or you know, when you're at a restaurant, you have to pick up like in my head, give me your phone. And I don't want to be asking Arden for her phone. You know, like I just I but here we are on like, Hey, can I get your phone for a second? And I've learned I used to say give me your phone. And now I say Hey, can I see your phone? Like it became important to her as she got older that I asked her permission to take the phone from her.

Sian 59:46
But yeah, I think most it'd be the same. Yeah.

Scott Benner 59:49
So I learned that but I'm also a boy. See, and so you understand, like, I don't think about things like that. I don't think about how I sound or what I'm big because I know my intent and My intent is pure. So I don't need to. I don't know, I don't I don't need to like, I'm way nicer on this podcast and I am in my real life. Because I don't know if you're a kook, you know what I mean? So I gotta like kid gloves. Like, while I'm talking to somebody, because I don't want someone going off on me. How amazing is that in 750 episodes, no one's yelled at me. I keep waiting for it. I keep thinking someone's going to come on under false pretenses and get on and be like, I hate you. And I hate this podcast. And it just doesn't happen.

Sian 1:00:32
If that if that happened, would you? You know, happy

Scott Benner 1:00:36
I'd be like, oh, please tell me why.

Sian 1:00:39
Like when you'd put it on to the out there. Oh, of course,

Scott Benner 1:00:43
though. Yeah. Well, I just, it's, um, it's just, it's a good conversation, like, for the same reason that I asked you, can you tell me what helped you about the podcast? I'd want to listen to somebody and say, Hey, what don't you like about this? Yeah, you know, yeah, now someone's gonna probably do

Sian 1:01:00
it. But I was just about to be careful with

Scott Benner 1:01:04
six months of people being like, and another thing, you're great. But, you know, it's just, I don't mind the feedback. Like, I don't take it off. Like, I've gotten feedback in the past where I've read it and thought, well, that's reasonable. You know, and I do this thing now where, when I make transcripts for the podcast, I use this online service. And I'm gonna pull it up now just for for fun. And so I drop an mp3 file online, and it turns it into a you know, a Word file that I okay line so people can there are people who read the podcast, God bless them. I think I'm hoping it's for reasons of like, auditory problems and stuff like that, not because they're reading podcasts, because it seems odd to me if you're just reading.

Sian 1:01:53
I used to listen to the West Wing weekly, religiously loved it. And but I sometimes did read it rather than listen.

Scott Benner 1:02:01
Wow. Yeah, that's not for me. Yeah.

Sian 1:02:04
I did. If I think it was if I was particularly looking for them to discuss a certain thing, and I didn't want to, maybe this into everything else at that point. So I would just have a quick scan. Oh, yeah. Okay, they did discuss it. I'm gonna listen to that one right now. See, and

Scott Benner 1:02:21
I have a limited, like edition poster made by someone overseas. Actually. It right behind me. It's, um, it's us Governor Josiah Bartlett for President. It's the greatest like it's a campaign poster. But from the TV show. I thought it was really great art when I saw it the way the person. But But So here, I just pulled up an episode that you all haven't heard yet. Right. Okay. And I am listed as a speaker and Margaret is listed as a speaker Margaret spoke 49% of the time, and I spoke 51% of the time. Okay. And so I my eyes glance over those numbers. When, when we when I make episodes now, and if I see the, if I see it splitting, I get like, okay, don't talk too much. Like I have that feeling. And there are some What do you like it to be?

Sian 1:03:17
5050?

Scott Benner 1:03:18
I like 6040. Me. But also, that's because I'm I read bumpers in the front where there's not another I read the ads in the middle I read at the end like it should be if it's 6040. Maybe it's probably more like 5050. Yeah. In the episode, if it's 5050, then it's probably really more like, you don't I mean, like, I'm probably talking a little too much. And then there are times when Jenny and I do like short management stuff, where I'm it's almost like a comedy team. But we're not talking about something funny. I do the big setup. And then Jenny comes in and gives her opinion. And so there are people who hear that and think Scott's talking more than her, but I'm putting you in the position so that when you hear her answer, it flows into your mind easily. Yeah, like, yeah, I set her up and she, you know, she kicks it. That kind of thing. Yeah, here's another one that just went up the other day. 55 me 45 Aaron, this. That's perfect. Like for me. There. There have been a couple where people start talking, and I can't stop them. I'm just like, I just give up. I'm like, Okay, go ahead, talk your face off. I don't know what to say. You know, just and then I'll look later and they spoke like 70% of the time and I spoke 30% of the time then I realized like 10% of that is me like saying like dexcom.com forward slash Oh, my God. I never spoken this episode, you know? But they all to me, they all How do I want to put this? There are episodes that I've made that I personally wouldn't want to listen to. And okay, and then I get great feedback from them. And it reminds me that I'm not everybody. So even if, even if the content is good, but I didn't like the flow of the conversation, or something, there's still someone out there who it will hit. And so it's valuable for them. It's almost like when I put up episodes about people who are pregnant with type one, they're very popular in a segment. But overall, they don't download as well as other episodes. Yeah, because not everybody is interested in having a baby or they already have or whatever. But I still see them as a public service. So I don't like when somebody says, I want to come on, like I have one going up in a couple of days. It's about IVF. I'll tell you, I can tell you this, right. It's about IVF. And pregnancy. That's what it was supposed to be about. This woman was going to come on and talk about in vitro fertilization, and her pregnancy and she was going to come on in like, like pregnant and talk. And we're having the conversation and you know, I'm just building the conversation of I don't know how far we are into it. 20 minutes, 30 minutes when I realize she's had a miscarriage. Oh, recently. And I just like, I got crestfallen. And I said, Why did you come on and do this? Yeah. Like, like you didn't like, and I started, I said to her, I'm like, Oh, God, I said, so many stupid things over the last 20 minutes. Like, I didn't know, you just had a miscarriage, you know, and she's like, it's okay. And, and I did not expect that to happen. Right? And so when you put that up as an episode, it's really going to help the people who need it. And yet there are going to be a larger percentage of people who are going to look at that episode, pass that by not listen to it. But I never think like, Why can't run this? Because I'm giving away downloads today. Like I don't I don't I think of it as like, it's a it's like a public service. Not everybody needs it, but somebody does.

Sian 1:07:00
Yeah, and not everyone needs at this point. But they may well need it at some point. And now it's there for you know, it's there for me and for Maisie in the future, to reflect back on

Scott Benner 1:07:12
Yeah. So, you know, it's, I mean, making the podcast is really was just somebody, somebody kind of flipped me around the other day while we were talking and they kind of interviewed me for a second. And I told them, like, I think of the podcast as a, it's like a compendium of diabetes knowledge that could exist forever. And that will mainly be valuable for a long time until until management somehow, like drastically changes, you know. And I told him that I just recently contacted the company that hosts my podcast, and I sent them an email and I said, this is going to sound morbid, and I'm, I'm not ill, I just but what happens if I die? Like, how do I keep this podcast online? And they told me and I'm gonna mention it in a few episodes, so that somebody hears at some point, if I suddenly dropped dead, and you just don't hear from me anymore, if you contact the company that hosts my podcast and tell them that I died, the hosted for free for the rest of the time, they're in business. Because because it's a medical podcast, and it helps people. Well, that nice,

Sian 1:08:19
you know, that's really nice. It's gonna happen to you. But yeah,

Scott Benner 1:08:24
I'm doing my bad. I'm not doing my best to stay alive. I'm doing a decent job. I was doing my best. I wouldn't have sat up all night last night. Arden is getting ready to go to college in a couple of weeks. And she comes into our room last night, she's, you know, she's like, Hey, she's like my legs. She's getting ready to get her period. She's like, my legs hurt. Like, can somebody robbed my legs. And this is now what I believe why women get married. It's just so someone can rub them when they get their period. I really believe this is all they're looking for. And so she comes in, and I said, You better hope your roommate in college wants to rub your legs and she's, I don't think she's gonna want to do that. And I was like, Well, I better talk her into it. And so and she grabs my iPad and starts looking at pictures and she finds old photos from like, my wife's family that have been scanned from like generations in the past. And she starts flipping through them and before I know it, we're flipping through like, my wife's family growing up through my family growing up into our young family. And, and before I know it, it's like 330 in the morning. Oh, my goodness, like I gotta go to bed ice and I'm yeah, I gotta get up and record with somebody in the morning. And I was like, you'll you'll just art and you'll just sleep while I'm while I'm up you know?

Sian 1:09:41
And you sound very sprightly. You don't you don't sound tired.

Scott Benner 1:09:44
Thank you. I got an iron infusion recently. I'm doing great. Oh, sorry. Good. I'm all jacked up

Sian 1:09:49
and how I am. I'm in a similar ish situation. Our eldest Scarlett, she is going to boarding school on Monday. they, Oh, wow. Yeah. And she won a scholarship. Bless her. She's done incredibly well. We're very, very proud of her. But I am finding myself crying. Often. We had a barbecue for her at the weekend, and I chopped up some celery and I was just sobbing, thinking, I can't do this. I can't let her go. And but then suddenly, you know, she's 13 and a half, you know, she's, she's not little, but she's, you know, still my baby. And. But then it suddenly dawned on me that if she's not happy, she can come home. That's it. Yeah. So as long as she's enjoying it, and hopefully she will, you know, it's an amazing opportunity for her. And it's a fantastic school that she's going to, and it's not that far away. It's only an hour and three quarters. And she's actually going to be home every month, whether it's for a weekend or for a holiday, you know? But yeah, my heart is, is hurting. I don't know how I'm gonna leave. The parents have to leave at four o'clock next Monday. I'm not quite sure how I'm gonna walk off of that campus.

Scott Benner 1:11:11
Crying. Yes. Sobbing being well, so Arden's going to college, some form, it's about a 14 hour drive from here. So it's a plane, if you have to do a quick like, we're leaving on, like, we're leaving at the beginning of September, like a full day and a half before she has to be there. And then wow, and we're taking we have to take two cars to get all of her stuff there. And you know, it's just,

Sian 1:11:39
it's gonna you emotional.

Scott Benner 1:11:41
I lately I've been saying to her, you know, are you sure you want to abandon me like this? And just go to college? I was like, you could stay and go locally. I'll give you money in a car if you want to stay. Yeah. Wouldn't you like money in a car? You know? So, but she's so excited about what she's doing and where she's going. antastic she told me that's amazing. Yeah, she said last night, she's like, I just want to go now. She's like, she's like, I went through not being sure. And I went through being nervous. And I went through being scared. And now I know for sure this is what I want to do. And she's like, but it's like two weeks from now I just want to go. And I don't know how to explain to her like, I Please don't leave, like just stay, you know. And then last night, while we're flipping through the picture, she points to this photo of her, like in a bouncy seat. So how old are you then you're less than, you know, you're about six months old. You put them in those little seats. It's so they can kind of learn how to hold themselves up, you know? And she goes, isn't it crazy? That That baby's going to college next month? Like what are you doing? Like so that it's three o'clock in the morning and I make me cry? You know, I guess

Sian 1:12:46
garlic keeps playing this Abba song. I don't know the name of the song from Mamma Mia. And the first words are something like school bag in hand. She you know, it's basically about leaving home. And I am just sobbing. She's playing it in the car and she's doing it on purpose, because she knows it's gonna break me.

Scott Benner 1:13:05
Well, you want to hear something every time you want to hear something worse. That song called slipping through my fingers.

Sian 1:13:10
That's what it's cold. Yes. That's the one. Right? So So I was just about to say thought oh, is Arden. Are you still gonna be following Adams numbers?

Scott Benner 1:13:21
Oh, yeah. She's not gonna be like that. No. She's, you know, she's going to be sleeping on her own with. I mean, we were going down getting her moved in. We're actually going to stay a couple of days afterwards. And, you know, go out meet her like, so she's gonna have I don't know how you would put this Are they flatmates? So, yeah, so she's in a, she's gonna be in a room that has two bedrooms. And there are two girls in each room. So there's four people in the flat, I guess. And I'm trying to say this in a way that you would understand. Ignoring, ignoring that 90% of the people listen to podcasts in America. And now we're like, just say that it's an apartment with two bedrooms, you know? So it's an apart it's an apartment style with two bedrooms. Right, two girls needs room. One girls from Hawaii, one girls from North Carolina Arden's from New Jersey. They've all met online, they've been chatting, you know, and stuff like that. But it's a strange thing. Like we're gonna have to take these girls out to dinner and sit down with them and be like, hey, so if Arden's thing you know, like, which one of you would be comfortable sticking this in her but if you know, like that kind of thing, and I feel badly for them even because they're also nervous and excited and etc, but we can't leave that space without those people understanding basic safety care for art, you know, is that to help yourself

Sian 1:14:47
and desire to never get a compression most.

Scott Benner 1:14:51
She hasn't recently, but she has. I mean,

Sian 1:14:56
if you phoned her and said turn over.

Scott Benner 1:14:59
Well, we're about the Find out because when she stays by herself, and we've been doing these little test runs for the last couple of years, like going to like Kelly and I went to a wedding and left her by herself for a couple of days. And she does seem to wake up when she knows it's on her. She seems more receptive. But if she had receptive to the sounds, but if she's has confidence that someone else is looking, then she doesn't hear it so much.

Sian 1:15:25
But I, the A few weeks ago, Maisie had a sleepover in the village. And I was running through the streets at 4am. Because she, she was sleeping in a little trailer with two other children. And I'd said to just push her into bed, try not to have a compression. I said, Don't worry, Mom, I won't because I can't actually turn over. We're, like stuck. Yeah, that's brilliant. Okay, great. So when I woke up to let me find the, to 50 with arrow down, what's this? This shouldn't be happening because she couldn't turn over so I don't understand. And then I just get l o w. You know, lo I'm like, Oh my god. So for I am I'm racing through the blooming village. Find her and one of the children had gone home. So she now had to turn over by his phones her five times. Nothing. She just, you know, her phone was on. But she was just sleeping through it. It makes sleepovers difficult.

Scott Benner 1:16:32
Then you get there. You're just like rollover.

Sian 1:16:36
You're fine, right?

Scott Benner 1:16:38
I'll make my way back. Luckily, the ladies out there tanning the leather. I can say hi to her. And I know you don't. In my mind. You live in the Smurfs Village. This is little mushrooms that you live in. That's not the case. I'm getting close. Do you love it? When I say something outlandish to people who are living in Canada. And they go yeah, that is kind of what? I think I'm being stupid. And they're like, no, there is moose in my backyard. And like I know. There's a there's an episode coming out next week. With that girl, Margaret, that I mentioned earlier, and it's going to be called Midnight gnocchi. Is that Is that how you say that? No, it's not there's a it's that's pasta. How do you there's a more of like, there's a fancy way of saying the word. Anyway. I wanted to name the episode Yukon asked shaker when you find out why you're gonna be so

Sian 1:17:37
is this an after dark episode? No, it's not. She

Scott Benner 1:17:41
just she was just found herself in the Yukon. Like, like, pole dancing, but with their clothes on in a casino and, and you know, and I'm like, I'm like, what is it? And she's such a nice crunch. You know, I'm like, how did you end up doing this? And she's like, I don't know, I didn't do it long, etc. And then I was like, did they throw chips at you? And she goes, Yes.

Sian 1:18:07
I was. I was laughing at the last one that I listened to. I can't remember the young girl's name but you were explaining the word.

Yes. What you said, Oh, we're having a lovely moment now.

Scott Benner 1:18:25
Just like you and I are gonna have such a lovely moment. I'm gonna teach you a word. Basically, she's like, 2122 years old. She's college. Yeah. And she's just trying to figure out how to keep creepy guys offer and drink it. Yeah. And I'm like, do you want to know what a kucha mountain? No. Then I realized she didn't. Then I started stopping because I was like, I don't think she understands what this word is either. So we started defining words as we were talking to her. She was really good. She was very honest about what it was like for her to be at college with type. Yeah, I thought that was really that was one of the episodes that my tormentor doesn't like,

Sian 1:19:08
Oh, really? Hard to get? I don't know it was I like listening to those ones about college because you know, sort of prepares me a bit for what to expect in the future.

Scott Benner 1:19:22
Listen, if I'm being honest, and there's no way for me to know people are what's in their heart. But I think this person that I'm talking about might be a dick, so don't worry about that they're just trying to be difficult. Alright, so, Stan, is there anything we haven't talked about that we should have?

Sian 1:19:38
Nope. I've gone through my list. Nope, we've covered everything. It's been a pleasure. Thank you so much. No,

Scott Benner 1:19:46
it's about my pleasure. Your accents. Terrific. You're great. You're great. You're exotic, and understandable.

Sian 1:19:53
I'm dreading this index. I actually hate my voice. Think I sound I was thought I sent like a mammoth. Because if I've got a cold and yeah, I don't know

Scott Benner 1:20:04
what, first of all, I haven't gotten to the point where I asked you if you've if you have any of those big Scottish cows there you?

Sian 1:20:13
Oh, yeah, not far. Yeah,

Scott Benner 1:20:15
they seem around the corner. I would love to see them in person one day, but that's Yeah, they're really beautiful. But what did you say about your voice? It's like a mammoth. Yeah,

Sian 1:20:24
like a woolly mammoth. I don't know why. But as a teenager, I always used to think I sounded like a woolly mammoth. If they were going to speak, I think they'd come out with my voice.

Scott Benner 1:20:33
It's like a snuffle off. I guess thing from thing.

Sian 1:20:37
Yes. Yes.

Scott Benner 1:20:38
So you think you're you think your voice sounds? Like muted? Like not bright enough?

Sian 1:20:46
Yes, yes.

Scott Benner 1:20:50
I don't see that. You know, there are four people in the Facebook page that have the Euro first name spelling. Really? Yeah, that's,

Sian 1:20:59
that's pretty pronounced that Shawn. I might be wrong. There might be a response to that. On the on the group, but yeah, Sean is the most common way of pronouncing but my mum decided to pronounce a Seon

Scott Benner 1:21:15
Do you it's your mom just illiterate? What is going on?

Sian 1:21:21
Why she chose it. I mean, my sisters Gemma, you know, why on earth did she call me Seon? It's just been such a and when people say it right the first time on Wi Fi. What?

Scott Benner 1:21:31
What's wrong with you?

Sian 1:21:33
Yeah, like my husband can't say my name properly. So he just calls me Babel.

Scott Benner 1:21:38
Are you the blonde in the

Sian 1:21:40
photo? Yes. Camping photo on your Facebook.

Scott Benner 1:21:44
Are you the blonde in the camping photo? Yes. Okay. Probably Probably. Other Other

Sian 1:21:50
in your camping photo.

Scott Benner 1:21:53
You have no photos up on online. So it's either you or your family went away with another woman? I'm not sure which it is.

Sian 1:22:01
It will be me. Yeah. We're not friends. Is there only a few that come up?

Scott Benner 1:22:05
Yeah, I just have a pop up. Yeah, that's all I was trying to stalk you for a second. while your kids are lovely.

Sian 1:22:13
Yeah, the cuties. Absolutely. Alright, so

Scott Benner 1:22:16
you have the cows. You sound like snuffle off, I guess. I don't know why. But didn't he wasn't he like depressed? Wasn't he like, hey, bird? Yeah. Oh, you don't sound like that at all.

Sian 1:22:32
I'm gonna have to find him now. Yeah, well, thank you. That's for some reason what I always I always felt like my dad once told me he thought I need to my adenoids out because I just always sound like I've got a cold that's always stuck with me.

Scott Benner 1:22:52
That's where you got that shining bedside manner when you're like, oh, it's diabetes. I don't know anything about it. But I know you can't get rid of. It ain't no thing where we take your adenoids out and you sound like Big Bird. I'll tell you that much. Oh my god. All right, well, oh, my little bubba. I appreciate this very much. Thank you for doing this. Thank you very much. Take care.

A huge thank you to one of today's sponsors. G voc glucagon. Find out more about Chivo Capo pen at G folk glucagon.com forward slash juicebox. They spell that g VOKEGLUC. Ag o n.com. Forward slash juice. And of course we're gonna thank Dexcom makers Dexcom G seven continuous glucose monitor dexcom.com forward slash news box to get real time information that makes a real difference. Don't forget p one D exchange.org/fuse. Box complete the survey today. support research me and you. P one D exchange.org. Forward slash juice box. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. And if you join the private Facebook group, please say hello. I would love to meet you