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Scott Benner 0:00
Hello friends, and welcome to episode 607 of the Juicebox Podcast.

On this episode of The Juicebox Podcast, I'll be speaking with Ed, who is an adult type one. He's also a parent, husband, and a number of other things that we get into. He said a lot of things as a lot of things. And he's a person like you like me just trying to get by. I'm just kidding. Ed's great. We're gonna have a good time. Please remember while you're listening, that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin.

Just now, I realized I could have named the episode Mr. Ed. I still could I guess. The amazing Mr. Ed. Is that how the horse is a horse? Of course, of course. The Baba, I can't think it is on Mr. Ed. Song. Unless the horse is the famous Mr. At the famous Mr. Ed, should I call it that? I don't know. We'll see.

This episode of The Juicebox Podcast is sponsored by the Contour Next One blood glucose meter. You can learn more about that wonderful little meter at contour next one.com. Forward slash Juicebox. Podcast is also sponsored by touched by type one. And they're of course available to you for your viewing and reading and looking pleasure on Instagram, Facebook, and it touched by type one.org.

Ed 2:03
My name is Ed. I'm 48 years old. I've been a type one diabetic since 2000. So with that being said, Scott, now you have to figure out how old I was when I got it. Wait, I do. I was going to how you look. I know how you love doing math. Well,

Scott Benner 2:18
I went the easy way. And I was like you've had it for 21 years. It's easy that way. What did you say? How old were you when you're diagnosed?

Ed 2:28
I was just about to turn 28.

Scott Benner 2:32
You're 49?

Ed 2:33
I'm about to turn 49 September 1.

Scott Benner 2:37
All right. Okay. See? You gave it away. You were 2728

Ed 2:42
Yeah, it's 21 years.

Scott Benner 2:44
So you've been on it that long.

Ed 2:47
Yeah. And for the first 1718 years. It was okay. I'm not gonna say it was great. Wasn't a great diabetic, but I wasn't a bad diabetic. I tried to eat okay. But my problem was I never tested myself as much as I should have and and without a CGM that I have now not having any idea of what my blood sugar was in between meals, or through the night or anything like that. So it's been much better now for the last three years for sure.

Scott Benner 3:18
So let's put this into context. Because my no messing around, throws me off. So in 2000 year, how old

Ed 3:25
I am about to turn 28 I just started a new job had just started a new job yet, and moved back to New York from Texas where I was working in another job and I flew back to New York for another job.

Scott Benner 3:38
And your accent must have stuck out in Texas like a sore thumb, huh?

Ed 3:41
A little bit. Sure.

Scott Benner 3:46
Okay, so 2020 years old. The technology I mean, the testing technology exists then.

Ed 3:55
Yeah, I mean, we had a mere it was like the first meter I got it was, like 30 seconds to get the reading. Which is I mean, we just sitting there 30 seconds seems like a long time we just waiting for the you know, countdown 28.76 And then then the fight you find out your number.

Scott Benner 4:13
And you had I'm sorry, I mean to cut you off, but you probably had a you probably had homolog or something at that point, right?

Ed 4:19
Yes. I was on obviously MBI for the first six months or so using human log and Cuba when human Okay, which I think is just like a long acting one

Scott Benner 4:29
right. Now, you said you did this thing that that a lot of adults that have had type one for a while do it's super interesting. Me. You were like it was going okay. Like I don't know what that means.

Ed 4:41
Yeah. It was going okay. I don't know how else to say I mean, I wasn't I wasn't having many, many lows for sure. You know, but I was probably running higher than you'd want to. You'd want it to be, but especially if I was looking at my numbers now and back then I'd be like, What the hell was I doing?

Scott Benner 4:59
Well, So that's what I usually think of right is when they when when you guys say when you guys have now lumped together everyone has had diabetes for like 15 or 20 bucks. We're all just one group. Yeah, I don't mean it that way. But but the people, the people I've spoken to when they say that I feel like what they mean is, I didn't get dizzy and I didn't pass out. Right? Is that how you felt about it?

Ed 5:24
I yeah, I guess I mean, at the time, I wasn't, I didn't want to say I didn't take it seriously. But I wasn't taking it too seriously. I knew what I had to do. I took my shots when I had to, I tried to watch what I ate. And I just tried to live as normal as I could, I didn't really try to let it you know, hold me back from doing anything.

Scott Benner 5:44
Right. I that's the other thing that people love to say is like, diabetes doesn't hold me back. And I always think of, like, when you say that to me, if you said to me, Hey, Scott, I see that diabetes doesn't hold Arden back in my mind that paints a picture of somebody with really stable blood sugars, who doesn't get low when they're active, and can do things on a whim, you know, can stand up and say, I'm gonna go out now, and it's not a big deal. And I have had the feeling over the years to talking to adults who have had type one for a long time that when they say didn't hold me back, what they meant was, is I just did stuff. It didn't matter what my blood sugar was. Correct? Right.

Ed 6:24
I'd say that's a fair statement. Is

Scott Benner 6:26
it okay for you? And obviously, I'm not lumping everybody together. But for me, yeah,

Ed 6:29
yes. There was never a time. Where is it? Oh, wait, I can't do that. I gotta take a toll of something real quick. Never.

Scott Benner 6:36
But in context, it means if your blood sugar was 250, you would have just gone out to dinner anyway. Yep. And then your mind. diabetes wasn't holding you back.

Ed 6:45
Right? Yeah. And if I was a 250, and I was allowed to eat all right, let me just give myself a correction. Oh, at the time, and just go, and then probably wouldn't test myself again until hours after dinner or before bed.

Scott Benner 6:58
See, you're you're you're cementing my, my thought that diabetes doesn't hold me back means I'm just not going to pay attention. I

Ed 7:07
know. Well, I guess I guess, I guess I was never really that bad. Right? I mean, my, my agency has always fluctuated between mid to high sixes and a top out of being the highest 8.2.

Scott Benner 7:22
So for me, it's context, right? And I shouldn't joke around because I don't want anybody to take it the wrong way. But back then, or even 10 years or 20 years prior to that everybody's experience with diabetes is different based on the timeline. Like, sure, you really weren't being held back and you were doing the things that you were asked to do. But now in hindsight, the way you manage now, you can look back and think, oh, wow, like, that's not nearly what it could have been.

Ed 7:50
Exactly. And I wonder about did I cause myself any damage?

Scott Benner 7:53
I would imagine you think about that. Yeah. But you know, but I mean, I don't

Ed 7:57
I still have, you know, I saw all the feelings in my feet and stuff like that, you know, the doctors always try to test that. I don't have I don't I don't have any other ailments that I would think that would have been caused by any damage I might have done to myself, right.

Scott Benner 8:13
But even as I'm saying what I just said, like you recognize to like you were probably doing as well as you could have done with the technology that existed at that point.

Ed 8:21
Yes. I mean, I could probably test it a little bit more often. Okay. But but at the time, all I had was a meter. And at the time, my Medtronic pump,

Scott Benner 8:32
Was it really that much of a hassle to test?

Ed 8:36
I'm a lazy guy, Scott. When it comes to stuff like that, when it comes to stuff like that, I mean, you know, but

Scott Benner 8:43
in the moment, do you not connect testing more with living longer and being healthy? No, I say,

Ed 8:50
I just was just doing something. And then oh, I got to eat. Maybe I shouldn't. And then a next meeting, and I didn't even test myself.

Scott Benner 8:58
I gotcha. It because when I think about it with Arden prior to CGM, we tested frequently, I'd say. I'd say honestly, we might have tested Arden between 10 and 14 times a day before CGM, like I was trying to act like a CGM before I even knew what one was. Right?

Ed 9:15
Well, and good. That's being a good parent.

Scott Benner 9:18
Well, your well is I was definitely just scared. Oh, for sure.

Ed 9:22
And I'm sure you've said it a lot. And a lot of people, a lot of people we've interviewed said the same thing. I was glad I got it as an adult. It's my parents wouldn't have to take care of me.

Scott Benner 9:33
Yeah, I can see that. I've also heard people say that listening to the podcast as an adult with type one makes them wish that things were like this now. So their parents, I think they're now seeing how impactful it is on parents. And they wonder if their parents weren't impacted similarly, but didn't have the tools to do anything about it.

Ed 9:55
For sure, yeah. Why or was that we just said I believe the correct statement

Scott Benner 10:00
Sure, yeah. So your your, your parents don't know a thing about your diabetes property.

Ed 10:04
Uh, I mean, they, my mom has passed for the last 10 years. But she would always, not really ask me about him just didn't really want to say didn't care. She definitely cared. But it was never a topic of conversation. Really?

Scott Benner 10:20
No, there's like, so it's somewhere more impactful than Ed needs to take a multivitamin every day. But yes, yeah, they don't really understand the details

Ed 10:30
of it. Right. And I'm thinking about this even at that time. I didn't understand that either. I just said, you know, doctor said, take your take insulin, as you eat, and you'll be fine. Pretty much. I mean, that's the gist

Scott Benner 10:44
of it. What, what stands in the way of the understanding, is it that the internet didn't exist? The way it does now, like what? Like, I got

Ed 10:55
to be good. I didn't even look up on the internet about type one diabetes, or, or obviously, Facebook didn't even exist at the time. So it just I just kind of just would, if I did, I tested myself. I said, All right, I'm gonna have this this much food, and we put them out in the carbs. I'm gonna eat into my pump and let it go. And then not know about anything else until eight again and tested again. Yeah. So knowing what I know now, and how insulin works from listening to your podcast. Oh, maybe Pre-Bolus in 30 minutes before that, I'll probably help.

Scott Benner 11:33
What made you look for more information this late in the game?

Ed 11:38
I had went, I was always part of my, you know, generic type one diabetic group on Facebook. Nothing. You know, I was just looking at I was scrolled past it. But then I, about three years ago, I went to my doctor, I got my 8.2 A one C. And he said, Maybe you should go get maybe you should go get a CGM. So I went to the educator, we talked about it. And we switch my CGM and my pump at the same time. And since then, the fact that I could see my number and make little corrections at a time. It's been really, really, really good.

Scott Benner 12:18
So that seeing that data made you want to do a better job with it.

Ed 12:24
Absolutely. And at first, before I started listening to podcasts, I would just put the CGM on and not realizing why is jumping why spiking like that?

Scott Benner 12:35
How do you find the podcast?

Ed 12:38
It was okay. So when I got when I switched to the Dexcom and the Omnipod, I joined the group on Facebook, probably it was like Omnipod, Dexcom users or something like that, right? And somebody had mentioned your podcast. And I said, Okay, I'm not I was never a big podcast listener. But about the same maybe three months, four months later, I got a Fitbit. So I'm going for walk so I can see my see my steps and and then I started listening to podcasts on my walks.

Scott Benner 13:09
You know, it's funny, people get healthy listening to the podcast, I'm sitting here. Melton to this chair. Oh, I gotta get out. But, you know,

Ed 13:19
I also got a Fitbit at the time, because it was able to, I was able to see my CGM data. So it was and then it's always telling you, oh, we got to get 1000 more steps, you got to get 7000 more steps. So I go from all walks. And then I needed something to do while listening while I was walking. So I listen to podcast, right?

Scott Benner 13:38
So I can recall, this is interesting, because you're a person who I've been aware of for a really long time. And it's easier for me to keep track of men, because they're fewer, like mental math.

Ed 13:52
I'm you been aware of me? No, no,

Scott Benner 13:55
I hope that sounds right. A lot of knobs passed by my face. And so some of them stick for just it's because my brain works oddly, and my brain makes rhymes up about some people's names. But the men are easier to track. Because there's just fewer of them. It's not as common for guys to reach out to me. So I can almost picture myself sitting in my living room getting a message from you, probably through Facebook. Yep, the first time and you were excited. Like to you were excited to reach out and not that other people aren't usually but I remember thinking that at the time. Do you recall that?

Ed 14:38
I never said Do I just come back to the doctor's office after maybe for four or five months on the Omnipod and Dexcom. And I went from an 8.2 to a 5.2. And that was the lowest it's ever been. And what really aggravated me a little bit was the doctor was like there's no way you could do that. What else Without going into having lows. Now if I can just back up a little bit, this doctor I've had probably seen for six years never looked at my numbers ever. Just so my CGM, so my a onesie, right? So what kind of care is that really given me, you know, but to me though I would go, he tells me my agency, he will give me my prescriptions I go on my way.

Scott Benner 15:22
Are you in the city? No, I'm on young. Okay. I always get when in the city, it's rushed. But on Long Island, you should,

Ed 15:32
it's always rushed. You know, they try to book three appointments at the same time. You get 333 to five minutes. And then, you know, you know how it

Scott Benner 15:41
goes, Yeah, you're right out. I have to tell you that one of the best parts of my day is that people pretty consistently send me their, like lab stuff when they come out of their doctor's appointments. Right? And it's, it really feels good. I have to tell you, I get to feel good a lot. I might be one day this, this whole thing will end. And I'll be like, You know what, let me use a music example. You'll really get it, I'll be Lenny Dykstra, like, all the fans will be gone, nobody will be cheering and I'll just be running around like doing flow and gambled away all my money trying to find the excitement that I used to have with my diabetes.

Ed 16:19
But I just got I don't, it's, I think you got to keep this podcast going as long as you feel like doing it. Because there's always gonna be new parents that that have to have to you have to handle the kids with the newly diagnosed and you're gonna be there for that.

Scott Benner 16:35
I also think there's always going to be adults who've had type one for 15 or 20 years and have some sort of a reckoning moment and are running around trying to figure out what to do now. I have no, I have no plans on stopping the podcast. I really do love it. Well, what else you got to do right now? Bear with me? Just sitting here. Right? But But um, but I do. It's funny. I talked to my son about this all the time, like when athletes quit? How difficult it must be for them to no longer get adulation? And why? Why some of them? I think go bonkers. Sometimes, you know, later. And

Ed 17:07
it's funny you say that? You know, I probably I mentioned to at one point my both my sons. They're 11 and 12. They play baseball. And I take them to hitting trainer. And I in the trainer, I asked them. How much do you miss playing baseball right now? And he goes, I can't believe I'm not doing it anymore. Yeah, I just I just I don't have the ability to so great. It's like, what you keep doing something. You can't not think about not doing it anymore. Yeah, we that makes sense.

Scott Benner 17:39
No, yesterday, Colin, I went out to throw. And that's a fallacy he throws I catch the ball on a drop in the bucket. But there's somebody out there as well as an adult with their younger kids probably like freshman high school age, and the kids were running and he was timing them. I don't know why it doesn't matter. But as I was walking away, the guy said to my son, like you play baseball, and he goes, Yeah, and and guy asked him where Cole told him. And then they started talking. I could hear Cole as I was walking away, talking about how much he loves playing baseball. And he's kind of a quiet person. So in two seconds, he opened up to a complete stranger and was telling him how much he loved it.

Ed 18:20
That's easy. And you're hoping he gets a new playing as long as again, because you know,

Scott Benner 18:26
you got a knock on something there because either your talent gets in the way your age gets in the way or you break something or, or something the wrong way. So yeah, great.

Ed 18:35
I think you had mentioned at one time in the podcast, how how many people play baseball as kids? And how many stop playing when they go to high school? And then how many stopped playing when they get to college? And then how many stop after that? Yeah. And then number is this like astronomical? And the fact that somebody can make it to the major leagues?

Scott Benner 18:52
Yeah, no, no, how could they have to be I'm astonished by that constantly that the year my son started playing baseball, 4 million American kids started playing T ball. And in Little League, and when Cole went into college as a freshman, 9000 of those 4 million kids went to play college baseball. And I think after that, you know, to the pros, it's 3000 maybe less. You know, if fewer than that it's um it's an interesting way to keep competing. It's something I think it's good for you like psychologically I'm saying once you make it and people are screaming in your ear and you're like, I am amazing. Like is there I'll joke like sometimes privately by myself in my room or I'll wander past my wife or something like that. But you know, getting back to it when when a person you've never met before 3456 10 times a day, different people send notes going hey my A once he went from a two to five to thank you, the podcast, whatever the note says. It's important to me not to minimize that, like that interaction. So I don't I don't receive them. I go, Oh, here's another one. Like you don't I mean, I don't feel that way. And I and I, even if I felt that way, I gotta be honest with you. I wouldn't tell you, but I don't feel that because I think it would sound like I'm

Ed 20:12
sure it makes you feel good. It's it's exciting that you that you've helped at least one person. And but now you've helped 1000s of people probably.

Scott Benner 20:21
Yeah, I hope so. I hope it's I hope it's way more than I even know about.

Ed 20:25
And it was. It's just, it's the basic concepts that you've always said. It was the first podcast I listened to. So it's always sticks to me. And I don't remember which episode it wasn't anything like that. But it was you Basal has to be right. Timing, insulin, and the amount of insulin. And that's it.

Scott Benner 20:45
I've added now like, understanding the different impacts of foods and staying Oh, the bowl and but yeah, I joke sometimes people are like, Oh, the podcast is so popular. I was like I to be honest with you. The podcast can be six minutes long and one episode, you know, but I don't think any but but, but that but no one would take it seriously, then it would sound right. And it would sound like that can't be right. And plus, I think the other stuff, these conversations just with you and like you don't realize it right now. But you just said something in the last 20 minutes. That will make an adult with type one want to do better? It helps Oh 100% You're like I'd now now know how this works like I can I now understand how this works. And even I that's why I'm always amused when I'll stop recording with somebody in there. Like if you don't want to run that I'll understand. I'm like what? Like, well, I didn't say anything was like you don't even know what you just did? Like you share. You know,

Ed 21:45
that was my reservation over even coming on the podcast. I'm like, What do I have to say? It's not gonna be exciting.

Scott Benner 21:52
Listen, you're a person who you keep like you send me your A onesies? I would say consistently, right?

Ed 21:59
Pretty much. Yeah, cuz I said, I said I'll say it every time cuz you're the only person actually make me understood why what I was doing. No locker has ever said Pre-Bolus for 30 minutes before you eat. Maybe check yourself if the doctors ever said that.

Scott Benner 22:16
Why don't we just pay attention a little bit? Yeah. That's fascinating. Because can you look back retrospectively? Would you have if someone made it important to you? Do you think

Ed 22:30
I I might have, but somebody who said you should really take insulin for about 30 minutes or 20 minutes for you. That would have definitely stuck in me casted myself aboard the time. I don't know.

Scott Benner 22:46
You might not have done that. I have to tell you, Arden you know at this point. I mean, I remember before CGM. I must have tested Arden's blood sugar 10,000 times, you know, in a handful of years, like I mean, a lot. And now, her fingers have recovered. Because I mean, look not for nothing. I don't I said this probably once or twice, but make bear repeating. I wouldn't let anybody test my blood sugar when Arden was little, because I had a real genuine fear that if I knew what it felt like, and I thought it hurt, that I wouldn't be able to do it to her. And I was always doing it to her, so I wouldn't do it, right. And then that morphed as she got older, and suddenly, like testing your blood sugar. She didn't care at all anymore. Right? And so I tested mine, and I have to be honest with you like when that Lance goes in, it ain't fun.

Ed 23:43
So it's definitely not. I mean, but I just remember this one time, I was going to a family barbecue. And I was giving myself in my in my insulin, as I was in the car, and my cousin comes out and goes, I can't believe I can never get myself shots. I go, well, the alternate is. Is that all die? Yeah. Like, if I don't, so. I bet you. Yeah, probably. If you don't, you know? Or yeah, something would really, really be wrong with you by now,

Scott Benner 24:14
but maybe by our people who wouldn't, too. Well, I mean, or do it less frequently to avoid it and maybe that leads to higher blood sugars or stuff. Yes.

Ed 24:24
I mean, I'm sure there's the you know, I said I never was a horrible, I hate the hate. Horrible diabetic. I was never that bad. I just had a heart just I was just lazy about testing myself. I always give my insulin. I would always try to try to eat but then like the testing thing taught would get in the way of like whatever I was doing or

Scott Benner 24:43
were you married when you were diagnosed? I was

Ed 24:47
just married since then divorced and remarried.

Scott Benner 24:50
Okay, deal of this so much did it again.

Ed 24:55
I say this all the time. You making mistakes in your 20s you fix them in 30s and your 40s guy actually sought to live happily. Without me. What happier?

Scott Benner 25:06
Yeah. So you agree with me when you hear me say like, I think I've just started to turn into a person in the last five or so years?

Ed 25:12
Yes, yeah. Just a yes, yes.

Scott Benner 25:17
But my point is that you were busy. Right? So you didn't you didn't? Your kids aren't with your first wife. Is that right?

Ed 25:24
My, my daughters are older. Oh, I have two daughters that are older. And they are 28 and 22. Oh, so you have four kids, then? I have four kids.

Scott Benner 25:34
I see. I think of you as having. Hopefully your daughters will never listen to this, I think of you of having to because you mentioned the boys and baseball. Like that's why

Ed 25:43
well that. My daughters are older. So they're kind of living their own lives. I have. And I have a grandson now was six months old. Wow. Which is, which is I was as being only 4048 I was like, There's no way I could be a grandfather. I'm never gonna be called grandpa ever.

Scott Benner 26:02
They're gonna call you grandpa. Are you? Yeah, yes. And your smile, and that's gonna be the end of it. So yep. Oh, that's kind of that's kind of crazy. Is there any autoimmune stuff with your family line or with your children?

Ed 26:15
Nope. Nope. Not I know of not yet interest. And that's always been my fear that my daughters are gonna be my daughters or my sons are gonna get type one.

Scott Benner 26:24
Well, they would you look like would you do trial that for your boys? You wouldn't

Ed 26:29
know? No, I don't want I don't want to have the idea of, you know, the thought about them getting it and knowing they're gonna get it. I just, I'm just gonna have to happen.

Scott Benner 26:37
Okay, and then you'll just you'll you'll see it coming. And then

Ed 26:41
yes, obviously know the signs, you know, drinking 1000 gallons of water, peeing all the time losing weight.

Scott Benner 26:48
Guess what? You've got diabetes? Yep. Do your do your girls. Are they aware of it? Like, do you think they think about it?

Ed 26:58
No. I mean, they they think about the fact that I have it. And maybe some of the things I have to do take care of it. But they don't. I don't think they're worried about getting it at all.

Scott Benner 27:07
Interesting. Okay. No, makes sense. Oh, here's a non sequitur. When you hear me tell people that their bagels are terrible. You know you like not?

Ed 27:18
Yep. And pizza as well. The pizza. Yeah. And you don't understand that. They're really is in the next three to four months, probably probably even sooner than that. But by the time this gets listened to, I will be living in Tampa, Florida.

Scott Benner 27:32
Oh, are you moving for good for work? For work? Yep. Yeah. So there's a pizza place in Tampa that the last time I was there, they trucked the water down from New York.

Ed 27:44
So I hear that a lot. Are they really doing that? It was good.

Scott Benner 27:47
I thought I thought I was home when I was eating it.

Ed 27:51
Are they really? Are they really shipping in water? People say they say that all the time. But are they really doing that? That's what

Scott Benner 27:57
they said. That's what my buddies I don't know. You know?

Ed 28:01
Mom was like boxing up pictures of water. And

Scott Benner 28:04
imagine it's in a truck. But now that I'm thinking about it, the guy I went with is a is a lifelong New Yorker. And it was almost like going for a pizza with a mob. Don, the way you talk. They bring it down from the truck. So maybe

Ed 28:24
I will say that that's what they do.

Scott Benner 28:27
I have to say, I have to admit it. I'm gonna shout him out right here. I'll never hear this. But Charles is one of my favorite people that I don't see enough. But who introduced me to the phrase, the juice isn't worth the squeeze. And the way and the way he says it's so much cooler than when I said,

Ed 28:43
Oh, yeah, I'm sure it is. I probably couldn't say cool, either. So I'm right. I'm right with

Scott Benner 28:49
you. That's crazy. So how do you manage now like, what do you have the pumps?

Ed 28:54
I have Omnipod and Dexcom 36 on the pod and I'm going to say if I didn't know about the other part of the time I was looking at pumps, I probably would have went with the T slim. Okay, but the pan and whatever it's called because of the integration with the pump. The public CGM.

Scott Benner 29:15
How long have you had how long you since you made that switch? A couple years?

Ed 29:19
Three years. Okay. So you probably probably six, six months after I first contacted you.

Scott Benner 29:24
Alright. And so you were looking at that because of back then? It was

Ed 29:30
I was it. What did they I was on a Medtronic. I was on Medtronic. Right. And it just I felt like it almost stopped working. I don't know if that's the right term. I think it was because I was only using my stomach over and over and over and over again, I say and the absorption just didn't seem like there was it was working.

Scott Benner 29:51
Yeah, that'll happen. You have to keep moving your sights around. Yes.

Ed 29:55
So good. With Omni pod. Obviously you can put it any way you want. So I've been on Omnipod and Dexcom 36 For three years

Scott Benner 30:06
for you. When when you were looking originally though, you said you were thinking about the tandem. And why did you go down if I,

Ed 30:11
if I had known about it, I went into my diabetic educator when my doctor said, Maybe you should go on a CGM. Okay. And she said, Well, here's that. Here's what the Medtronic looks like now. And here's what the Omnipod looks like. Those are the only two options like, you know, at the time, I, I'm sure there are others. But those are the options that were presented to me. So I had the fact that it was normally possible always tubeless got I don't have to get, I don't have to get stuck on a door handles. I'm running to the bathroom in the middle of the night.

Scott Benner 30:41
Right. So I see. So you're saying that if you would have known about the integration with tandem that yes, that might have moved you over? Yes. But now it's

Ed 30:50
interesting at the time, at the time, I wasn't even like, I never really looked at all the pumps and or I tried to CGM once and I left the first time you referred to it as a hot tool needle.

Scott Benner 31:03
Because that Medtronic one was tough, huh?

Ed 31:06
Oh, it was I was like, There's no way I'm gonna insert this into me every time. So I did it twice, three times, maybe I maybe use it for a month, never see the match up with what my meter said and hurt like hell to put it into

Scott Benner 31:21
use abilities important. So this is an interesting thing, because had you gone tandem at first back then they just had Basal IQ Wait where it would have like to shut your Basal off to stop you from getting low. Now they have control, which is an algorithm and Omnipod is gonna come out. I mean, by the time this is out, I am very confident in saying that people are listening to this now on the pod five is available. So mine may listen, if I have to go back and edit that part out I'm gonna be praised that should definitely be out by then. But my point is different is that you didn't find an algorithm. So instead you found a podcast that you have an A one see right now that I don't know if an algorithm available retail could could meet

Listen, you're using insulin, you need a meter. You need a good meter. You need an accurate meter. You need a meter that's easy to carry. Easy to hold. Easy to see. Easy to use in the dark. You need a Contour. Next One blood glucose meter. Quick, top of your head. What kind of meter Do you have? Do you know the name of it? Have you looked into its accuracy? Have you found out if you're paying more for that meter, then you might be paying for a different one. A more accurate one? A Whoa. Yeah, haven't have you? Hmm. Oh, that's okay. I understand. Many people just take the meter that their doctor gives them. But you don't have to do that. You can use the meter that you want to use. Arden has been using the Contour Next One blood glucose meter for years now. And it is super accurate. completely reliable. The screen is easy to read. It's got a lightning fast like boom, like xinxing light, you know, I mean a light like for nighttime, nighttime viewing of the blood drop, I guess you are at nighttime viewing the blood drop. Anyway, the light is nice and bright. And it doesn't require a big blood drop. Almost cursed. Let me try again. I've made myself laugh Hold on. The meter just works. It's really great. It's easy to use and easy to carry. You should check it out contour next one.com forward slash juice box. It has Second Chance test strips. It's pretty great. Go find out what I mean the websites actually amazing too. And by amazing I mean it's a it's a website for a blood glucose meter. But it has a lot of great information. It's well designed and it's easy to get around. So you should check it out

Ed 34:13
my current doctor basically said the same thing. Because why you're doing it right now. I just want it so I can go to sleep and sleep through the night and not have to worry about alarm going off saying oh, your blood sugar's 68. Maybe you should get up and do something about

Scott Benner 34:27
it. Oh, it'll do that for sure. So what is and I haven't used on the pod five yet. This is interesting talking about the future when you're looking around. Arden does loop because loop lets you set targets lower. Arden has your a one C and she has all the stability. So what that says to me is that the retail available algorithms are able to accomplish that. I imagine if if the FDA if the companies would go back to the FDA and try to test again Lower tolerances, right. So you have to wonder if the companies are going to have the, the drive to do that or not. Because the the other side of it is that is that you throw on the pod five on most people, people who don't listen to this podcast, and you're going to take people with eight a one season 2681 CS, and they're not going to know how it happened. It's just going to be magic. And they're not going to get you know what I mean. And so, the ability to help vast swaths of people using insulin is right here, it exists. Now, you just got to get them on to people, will they? Will they want to make a super user version of it? I hope so. I really do. Or maybe it's manipulatable to the point where you can make some setting changes where you'll have lower outcomes, I don't know, because the only part five, from what I'm understanding is a learning system.

Ed 35:54
So it learns your habits is that it

Scott Benner 35:58
they say it makes different adjustments as time goes on. And so it's

Ed 36:03
not gonna have like all those gazillion settings. You got to do a loop now, or is it going to be I

Scott Benner 36:07
don't imagine that they're going to make, I mean, listen, the one thing to say about lupus, there are a lot of settings. And if you get them wrong, it doesn't work. So

Ed 36:16
yeah, that was I thought about when they first said, Oh, loop is available now for Omni pod and Dexcom. So I'm like, Oh, well, let me think about it. Yeah, but first, I didn't have an Apple computer. So that was pretty much out of out of out of the,

Scott Benner 36:30
I think, yeah, I think just being Do It Yourself would would move most people away from it. i It scares the hell out of me still.

Ed 36:37
I mean, I'm not like computer illiterate, but I'm not a programmer. So but I was able to build my own Nightscout Nightscout account, I was able to do that. So I can follow directions. But then then, as it went on people, oh, it would stop working. And you had to get you had to get this. You have to get this rilink from some guy, you know, wherever he's go something out of his garage. I mean, I don't I don't, but I hear it just seemed a little bit. Maybe. Maybe I'll just wait.

Scott Benner 37:10
Right, right. Oh, listen, had had

Ed 37:12
it. Don't get me wrong. I'm not trying to sit on anybody who does this? No. I mean, I'm happy that they're doing it. Just for me. I don't I just I'll just wait.

Scott Benner 37:22
100% I think you're I felt exactly the same way. And

Ed 37:27
if people you have a great you have a great resource that you can call in anytime you

Scott Benner 37:30
want. Yeah, there's people who are willing to help me, which is nice. But maybe a month or so ago Arden's phone died. Finally she had, she doesn't replace them constantly. So her phone was pretty old. And it just she comes to me one day, I've been telling her for six months, we have to, you know, your phone is done. And she's like, No, but

Ed 37:47
it's great color. She's a teenager and doesn't want to get a new phone. Now she

Scott Benner 37:51
liked her phone, she didn't want a new phone. So one day, she goes, Hey, like real, begrudgingly, she comes to me, she goes, I think we better get rid of this phone. I was like, Oh, she must have seen something pretty sketchy happened. So we go to the store. And we say we're going to trade the phone in the train, the phone had value, and we were going to get money back for it. And so we go in, and we're like, look, we need to trade in the phone, we're gonna buy a new one. But you can't have the phone right now. We can bring it back in a few hours. And the guy's like, why don't like her pancreas is on this phone, basically. So we trade in the phone, I don't get the money. I go home, get the new phone set up, I have to make a build of the app for loop and put it on a new phone, then get the whole thing switched over get it running correctly. And once it was working right and everything was switched over. I was like, Okay, give me your other phone. I'll blank it out. And I'll take it and and get my money in which I did. But it was a lot of work. And it's more than what I think you would expect what most people would expect. I think that most people would want a retail version of this. Like I download an app from the App Store. I turn it on it pairs to the thing the thing works, or it comes with its own controller they and it's prepared or what like you don't mean like no one's looking to build an app in you know, some program and have to own an Apple computers that you can be an I'm an app developer, for God's sakes because my daughter's on loop, right? I had to buy an app. It's too much. I'm not gonna lie to you. It's too much. You know what I mean? But the damn thing works amazing.

Ed 39:28
Think about the people who I I'm astonished by the people who actually take the time to do that, and then let everybody else know about it too. Is that's incredible.

Scott Benner 39:39
Yeah, people are inherently good. At least some of them are and you wouldn't think sometimes you get you're on you're out on Long Island you think everybody's an ass but you said oh, you only have to drive there once to not like people anymore. That's for certain but

Ed 39:59
I I'd say like though I like most dogs, more than most people

Scott Benner 40:03
cold played baseball out, like hours deep on the island one time. And this will happen, maybe, but I hated the drive out there. And the drive home. Like, once you get like, you finally get off the island you come up to I'm not accustomed that spacers all those bridges, and it just looks like, it looks like somebody took a handful of spaghetti through to the wall, and then said, that's what the road should look like. And

Ed 40:29
just Yeah. It makes you feel any better. We feel the same way about driving to Jersey.

Scott Benner 40:34
So imagine you do. Like I've never been so happy to be on the New Jersey Turnpike in my life as I was coming back from there. Oh my God, finally, just a regular amount of insanity.

Ed 40:46
Yes, I'll agree with that. I'll give you that

Scott Benner 40:48
there are people all over the Midwest listening to this who could never like you guys would never understand what traffic is. It's just feeling like you're just, you've got a hold of the steering wheel. And you're like, every decision I make could be my last.

Ed 41:03
Yes. And just and just sometimes the the anger of just sitting on a light and then knowing you only got to go about three feet when the light turns green.

Scott Benner 41:12
Yeah. No, nobody should live here. You'll probably enjoy Tampa much more except for I hope so. Yeah. Anyway, so the algorithms right, like, they're the future, I'm confident. I am 100% confident they are, I am thrilled about on the pot five coming out, it's going to go into most people and be an amazing change for them. And I hope I hope that adults living with type one who are fighting through sevens and eights will have the, the the ability and the nerve. And the kind of you know, enthusiasm to try it because it's it's gonna be astounding. I'm sure control like us the same way. You know, like in different it gets there a different way. But I'm sure it will be a great improvement for people. So yeah,

Ed 41:59
the thing is with the algorithm, if my blood sugar starts going up, I don't want to let the algorithm just take care of it. I want him to take care of myself at that at that moment.

Scott Benner 42:12
So you don't want to slowly go after you want to be more aggressive about it.

Ed 42:15
Yes, yeah. So a lot of times, I'll just oh, I'm gonna go for like a 15 minute walk or something if I have the time, and that usually brings it back down, or starts getting it back down where I want it to be.

Scott Benner 42:26
Right? Yeah, we're making, you know, I don't know how Omnipod five is going to work yet, because I haven't seen it. But I assume it's going to work through Basal increases. And the version of loop that we use doesn't work through Basal increases, it works through boluses. Okay, so the the original version of loop that we had, if I'm getting this wrong, I apologize to the loopers. But I think that would be Pete's version makes adjustments by Basal. And it worked great, but it was too slow. Like it didn't stop spikes quickly enough. It didn't bring them down quickly enough. Like for me. I think I use Ivan's version now. And that one, when that one sees a rise, it makes a Bolus. Okay, see, that's pretty legit, the way that works,

Ed 43:13
and the fact you know, the fact that you that personal Do you have like I said, they they have somebody who's just making this stuff and giving it to you is great. But if I was to use it, I would think I would probably only use it at night. Because I think I'm very good at keeping my blood sugar where I want it without having to do anything else.

Scott Benner 43:32
So when we started, I would say to people, it's really valuable overnight, but during the day, I do a much better job than it does. But right and I really taught myself how to think about insulin within the loop system. And now I know how to use it and keep it open.

Ed 43:50
I guess I guess we have the user for a while. You will you're gonna understand that better and be able to use it the way you want it to work.

Scott Benner 43:58
Yeah. Yeah. And I I'm excited for on the podcast, actually. They just it's interesting. You brought it up, because I, you didn't have any notes for today. And I didn't know what the hell we were gonna talk about. But I just got an email like an hour ago. That was double checking on my NDA for Omnipod. Five, from insolate. Nice. So that must mean if I'm guessing that must mean that we're going to see it here pretty soon.

Ed 44:28
That's fantastic. Is there? I'm sure you'll have an episode about how it works.

Scott Benner 44:31
Well, as soon as the NDA lifts. Yeah. But I think it's possible. I'm going to get it to use it before other people. So I won't be able to talk about why I'm doing it but just so special. Well, I don't think it's titled like that's why I think I think it's I think it's slowly because I reach a lot of people and and I've been telling insulet for years as this has been developed. You know, that I thought there was value in me knowing how to use it. Before was on the, you know, before everybody was holding it in their hands, you know, because I said there are going to be a fair amount of people are going to turn to me and say, I don't know how to use this and you don't want me learning it at the same time they're learning it. I was like, so it might only end up being weeks. You know what I mean? That I have it, you know, ahead of other people. It's not like I'm gonna have it for six months before other people.

Ed 45:21
But definitely that people did you go on loop because people were pestering you to do an episode about it.

Scott Benner 45:27
There's a there's one woman specifically, I just, I just actually recorded with her recently. And she, you know, came on and talked about why she pestered me about it. And it was the same reason she's like, I need you to understand this so I can understand it better. So it was her she's like, I'll help you build it. I'll get you on it. Like you just please. Please, like, learn how to use this so you can talk about it.

Ed 45:50
I need you to learn it. So you could teach me about it.

Scott Benner 45:54
It's uh, it was it was a, it ended up being a really great thing are names Gina. She'll be on her episode. I'm sure by the time somebody hears yours will have been up for a while.

Ed 46:04
Well, I don't expect my episode about till probably this time next year.

Scott Benner 46:09
No, no, you'll be around Christmas or so. New York holiday treat. But what she did ends up being I mean, it was, it was amazing. Because the one thing I learned about algorithms are they let you sleep. And I've been sleeping really well for a couple of years now. And it's

Ed 46:33
I mean, that's, that's all I want.

Scott Benner 46:37
Your like, half a one see if I can sleep through the night.

Ed 46:41
But it's just you know, other times I'll just sleep because I'm just stare at the walls thinking about things I can't control. And, and then oh, then my blood sugar goes low. And now I'm up because of that.

Scott Benner 46:51
Yeah, you have that? Are you one of those people like you your brain starts talking to you when you try to go to sleep.

Ed 46:59
Doesn't that oh, that doesn't happen. Everybody.

Scott Benner 47:01
Oh, man. When it's time for me to go to sleep, I shut my eyes. I go to sleep. The world could be coming to an end. And I'm like, Well, I hope my wife,

Ed 47:07
my wife the same way. Yeah, we'll be laying in bed. I'm sorry. I'm gonna go brush my teeth. By atomic come back. She's asleep. And I'm just looking at us sleeping peacefully, and I'm just awake thinking about things I can't control.

Scott Benner 47:20
No kidding. Would you talk about that for a second? What is it? Like? What are some of the things that most like frequently popped into your head?

Ed 47:28
This you know, I got to make sure I got to make enough money to pay the bills. I got to make sure that the the oil in the car gets changed stupid stuff, things like that. It just I don't know why think about it. Just do

Scott Benner 47:42
so you're not worried about like a comet hitting the planet or something? No,

Ed 47:45
no, no, not now. Now I'm going to be thinking about that tonight. Probably.

Scott Benner 47:50
Car won't need oil and that situation,

Ed 47:52
right? I mean, I'm just using those stupid examples. I mean, this, you know, a lot of times, that now obviously would be about the move, I got all those anxieties about selling a house, getting a new house, packing the house up getting rid of all the stuff, we accumulated over 30 years that we haven't touched in 12 years.

Scott Benner 48:11
I think of tasks very simply. So I have a I have a to do list. In my mind. I have learned to write it down because I'm older now. And I will forget things. But what I've learned is that the things that have to get done get done. That just happens, right? The cream rises to the top is the It doesn't it doesn't. Yes, it all falls apart, something falls apart. So things make themselves obvious. Like suddenly you're like, Okay, this becomes so I'm very my to do list shifts. You could be the next thing on my to do list. And if the fifth thing becomes important, guess what? Everybody slides down, the fifth thing jumps to the top. So I'm never worried about getting things done. Because my assumption is that I'm going to adult during the course of the day, I'm going to work. I'm going to see my family, I'm going to make food. Some days I won't feel as well as I feel other days and the things that need to get done. I'll do first. And I guess that's why I don't worry about anything. But I don't know. I wish I could be like that. Yeah, I'm sorry for you. It sounds terrible. I watched my wife.

Ed 49:17
Like it's not like that every night. But there's you know this sometimes I'll just can't go to sleep and then I'm keeping myself up because I'm thinking about things that aren't that important.

Scott Benner 49:26
And if you're rest you can take care of.

Ed 49:29
Yes. I'm sure I'm not the only adult out there that does that. No,

Scott Benner 49:35
I don't believe you are not not nearly that's a level of anxiety. Right?

Ed 49:42
Uh, probably, I mean, I don't, I don't find myself during during the day being very anxious about anything. Okay. I just want I'm trying to go to sleep. That's all I'm finally quiet enough where I can think about things and then I start thinking about things I shouldn't be thinking about.

Scott Benner 49:57
Yeah, no kidding. I I was sitting with Kelly the other night, she's watching something on television. And I was like, I was like, Hey, I'm done. Now. I just turned over something on TV and it's loud. There's lights on, I was like, it's over for me, because you're going to sleep. I'm like, I'll likely be asleep before this conversation is over.

Ed 50:20
That is my wife 100%. And I'm just be looking at her as she's sleeping and, and snoring. And like, wow, I wish I could just do that.

Scott Benner 50:29
Well, I don't know why I can do it. I that I cancelled the podcast right now bottle, whatever that is and sell to you. Because I know it's a big deal for people. So you said you want to be able to sleep better with your blood sugar. So do you see lows overnight?

Ed 50:44
Not a lot. I mean, sometimes it'll drift into like the high 60s. But my alarm is set for 70. So I'm up just down that low. But it's not all it's not a lot. Yeah, it's, I don't get a lot of lows. I don't get a lot of highs. Although last night, I was at my son's game. And we did drop a little low with like, low than I expected. But we take care. Hello. Hi. So

Scott Benner 51:13
yeah, were you more active? Do you think or

Ed 51:16
yes, what I did was that we actually became a game practice because the other team didn't show up.

Scott Benner 51:21
Oh, so you came to watch a baseball game and suddenly you were a dad helping with practice?

Ed 51:26
Well, I'm one of the coaches on the team. So I'm always on the field. But But now Now we're running a practice and I was playing I was out playing left field and I was running around a little more than I anticipated.

Scott Benner 51:38
You also just named your episode. Okay, out in left field. I mean, I left fielder or out of left field I'll find

Ed 51:48
the thing I haven't thought about what it's gonna be called before I got on on the on this call with you. Organic, you know, organic we named itself

Scott Benner 51:57
Yeah. For most people listening to you. I could just call it a Oh, and they would understand but you don't hear the way they will. I don't hear your accent

Ed 52:05
the way they will. No, cuz you, you and I kind of the same. Yeah, I

Scott Benner 52:09
basically feel the way you're feeling right now. Oh, okay. So you get out there you start hustling around? No pre like you didn't say to yourself, that's interesting. Why didn't you say to yourself, I should probably eat something before I start doing this or to try to get ahead of this with a Temp Basal or something like that. Or did

Ed 52:27
you? Because I didn't think about it. I didn't. I was already. I was already there. I didn't bring any foodie because that's how I am. And I always have my I always have something with me if I need if I go low. So I'm never too worried about it. So once I started drifting down low, I just pop some glucose tablets and 510 minutes late. I was fine. Wow. Okay. But yeah, I don't. The Temp Basal is down. At that point. It's too low. It's definitely too late.

Scott Benner 52:59
Yeah. But so but I was really interested in I thought you would say what you said, but I wanted people to hear it. Like it just happened too quickly, like life happened. And yeah,

Ed 53:08
exactly. Exactly. It really, you know, I was fine. The whole practice and then it started. It started going down. 9892 8471 I got the alarm. 62. All right, time back. At that time practice was over. I popped in my glucose tablets. I was I got down to 45. But then I was by the time I was home, I was 105

Scott Benner 53:36
While it's drifting down. What's your thought process? Like, maybe it'll stop

Ed 53:42
a spec, this is gonna be over soon, they'll take care of it.

Scott Benner 53:45
Gotcha. Because a couple of tabs in the middle of that drift would have stopped the 45 You think

Ed 53:53
100% If we would do the last thing we were gonna do. And I said, All right, let me just get get through this. And then I'll be able to take care of it. And I'll be fine. I mean, don't get me wrong. I wasn't about to pass out or anything like that. I just I felt that coming on. No, no, I'm like, Yeah, this is gonna be over in 10 minutes, so I'll take care of that.

Scott Benner 54:13
Okay, now I just wanted people to hear like your thought process to orient because it obviously worked out fine for you.

Ed 54:19
Yeah, it just, you know, I just needed 10 minutes and I was fine.

Scott Benner 54:24
Okay, interesting. So you just sit around a little bit before you left, you just take them and make sure you're okay. And then roll out.

Ed 54:31
Uh, I was slowly taking my time getting out of the out of the park. And then it was a little bit of a walk to the the car so I took that a little slower. My wife drove home, and I sat in the front seat and talked to her. That was fine. My time. My time was only a 15 minute ride by Tom. We were home. I was already in the hundreds,

Scott Benner 54:52
right? Do you think anyone around you knew?

Ed 54:56
No? Absolutely not. Right? So this isn't like why Because I told her, and I'll say it, I'll be behind you in just a few minutes. Right? And but like, if I know what no one knew?

Scott Benner 55:07
Yeah, if I said to your kids, your dad was playing left field last night, his blood sugar was getting low. They would be surprised by that.

Ed 55:12
Yes, gotcha. Everybody, everybody, all the other parents, everybody would have been surprised to have any trouble. I mean, I, I'm sorry. I don't I don't actively promote that I have diabetes, but I don't actively say I don't have it. I it you know, if somebody asked me about it, I'll tell them. But I'm not going out telling everybody Oh, I have type one diabetes.

Scott Benner 55:33
Don't show up in every new situation. Oh, it's a new season to the baseball team. Let me first tell you about my pomp and you just kind of

Ed 55:39
live your life. I mean, I tell the other coaches and other coaches, obviously, we're actually good friends with them. But I would tell them about it just just in case, some odd chance something happens. They know what my situation is. Right? That makes sense. But I'm not I'm not telling everybody. And I usually wear my pod either on my leg or on my upper arm. So it's not really noticeable. I see.

Scott Benner 55:59
While the ball was flying, listen, I'm giving your kids a lot of credit while the ball was flying around. Maybe while you're watching kids strikeout I don't know what was happening. Exactly. But did you feel like you could react if the ball came to you?

Ed 56:11
Yes. I thought at the time. Yes, I was still fine. Yeah, just the variable of me moving around a little more than I anticipated, had an effect 20 minutes later when we were doing another drill, but I was in left field, right.

Scott Benner 56:23
So that's where an algorithm would be helpful. Because the one thing that people might not understand about them as the way they keep stability is like, it's the it's the future seeing part of it, right. So it you know, if your Basal is set at, like, let's say your Basal is 1.2 an hour, I don't know what yours is. But that was okay. So let's make it one just for fun because it's around. Yep. So your Basal is one an hour. And this Basal is holding you nice and stable at 590 for a couple of hours at a time. And then the algorithm in loop believes that you're going to get lower later, it'll cut the Basal back. And so you'll never notice that happen. But when you go back and look, even with great settings, you'll see Basal get dialed back throughout the day, over and over again. But when you're a person who's on a regular pump, your Basal is one no matter what, it's not looking into the future. And I'm not saying that it would know you were going to get active, I'm just saying it, it can tell like oh, this, this 90 that I'm holding on to is going to become 85 and my targets 90. So it'll, it'll I don't know, it'll make your one Basal point seven for a little while, or it might suddenly take it all away, and then bring it back, you know, may take it down to zero for five or so minutes, and then bring it up to point two, it's fascinating to watch at work.

Ed 57:46
That yeah, I remember listening to somebody on your on one of the episodes where it happens. It could change like five minutes and stop changing and it would change again. Yeah, something else is just like, and the fact that it could do that is incredible. I look forward to be able to finally use it, it teaches

Scott Benner 58:05
you to while you're watching it like That's why if I'm helping somebody who's not on an algorithm, like you can say something like, you know, we're gonna make your Basal like, I don't know, from from one unit. And now we're gonna make it three units an hour, but just for like, 15 minutes, then shut it off. And you know, like, or, like, we're gonna take it all away, but I only want to take it away for a few minutes. And it sounds crazy. But once your settings are super stable like that adjustments in the moment are more. I want to warn here, they're more reactionary, like whereas if you were one unit a day all day with your Basal and you wanted to do a Temp Basal for activity, you might have to do it like 90 minutes prior. Right? Yeah. But it once you're on the algorithm, and your settings are right, you can make those adjustments a little sooner to what you want to happen.

Ed 59:01
That's I've been saying it's easy to say, Oh, you just dial your Basal back an hour and a half before you exercise. I don't know what I don't even know if I'm gonna be exercising an hour from now. You know, so it's tough for me to draw. Anytime I exercise, I have to eat something before I go do it. Because it you know, a lot of times I go for a bike ride. And I'm not scheduling this time ahead of time. I'm just Alright, I'm gonna go for a bike ride now. Right? So let me eat something.

Scott Benner 59:26
Yeah. So if you were to say I'm going to go for a bike ride right now. Oh, you know what? Let me set a Temp Basal an hour from now. You might not have time to go for that bike ride anymore.

Ed 59:35
Right, exactly. What I just said. Yeah, it's not a lot of times. I'll do it in the morning and then alright, I'll get up in the morning. Sometimes I don't feel like doing it. So then I've I my whole blood pressure is often because all right, I already dialed the back. But now I'm not going to go because it's Oh, I decided it's raining outside or something. So I don't go. I know I had a slow Basal. I need to bring it back up. So I just for me personally as my, my choices, I'll just eat something before I exercise,

Scott Benner 1:00:06
right? I think that, I mean, obviously the tools are in the pro tip episodes. But I don't imagine that means that everybody can use them. I just think under even understanding their concepts might help you make a amalgam of that idea with your life and find something that would work for you.

Ed 1:00:27
Yes, it's that episode about exercise. It all revolved around the timing of everything. Yeah. Like I said, there's nothing I can't just say, Oh, it's an hour and a half. Now I'm gonna go do what I want to do. Because life happens and doesn't happen.

Scott Benner 1:00:45
Yeah, well, also, but and the reason it's set up that way is because if you're trying to lose weight with type one, you can't eat to exercise because then you're

Ed 1:00:54
I don't Yeah, I don't eat. Like, I can say I eat something I like a banana. Okay. Or yogurt or something like that. Do that. Yes. And it's not something that's gonna, I'm not eating. I'm not going to grab a meatball hero and have french fries on the side with it or anything.

Scott Benner 1:01:11
How often as a person with type one do you eat when you don't want to?

Ed 1:01:17
Uh, for me? Not Not much. Good. I mean, and I don't eat when I don't want to, or eat when I don't want to. It's never I mean, sometimes maybe I'll have to go get a little snack or something. But I'm not. It's never been like, Oh, I gotta go eat right now. Because my blood sugar is 82.

Scott Benner 1:01:39
Yeah, I just wanted to know, like, and was it always that way? Or is it since your controls been better over the last couple of years?

Ed 1:01:44
It's it's always been like that. i It's, I've never really, I can't I can't remember any time where so I gotta eat right now. There has been times like, we're sitting around the house. Maybe we should go get some lunch now because I'm not going to wait another hour and a half. When it's three o'clock when it's all you know, we should be at lunch now. But sometimes, because I'll know, maybe we should eat lunch now. Because my body's telling me if we should probably right, that's

Scott Benner 1:02:11
better. So when should you correct lows with glucose tabs mostly?

Ed 1:02:16
For the most depends, I if I'm out, that's what I have with me at all times. A lot of times while I'm home, I'll just drink a little bit of orange juice, right? See your your real guy just a little bit just just enough to get back up. Not not a glass of it, where it's gonna make me do under 50

Scott Benner 1:02:31
Right now, but you're like a classic guy though. Like, if you have to eat a banana to go for a bike ride. You're not begrudgingly the bad one. I don't want this damn, but I'm not gonna do this F diabetes, you just do it? Because that's what needs to be done.

Ed 1:02:41
Right. Exactly. And then yeah, yes. And I found a lot of challenges Lately though. Because about a month ago, I cut out bread and pasta and, and rice. So to do that, just because I just want I wanted to lose a little bit of weight. And I had to make those adjustments on what I was gonna eat. And now the whole protein and fat comes into effect. So I was able to actually, because of the pro tip episodes actually be able to do this. I was always worried about cutting out bread because I'm like, how am I gonna do this and take care of my Bolus is in my insulin needs without the carbs in there. Interesting. But I was I've been doing it for a month. And as I showed you my last couple graphs that the weekly report 99% And range and the low carb has made it like my blood sugar is fantastic.

Scott Benner 1:03:41
Yeah. What's your range set up on that clarity report?

Ed 1:03:45
It's 65 to 155. And always I set it at 155 is that's what 7.0 was. And that's what they always said. Like, that's the goal.

Scott Benner 1:03:55
I'm amused that people who listen this podcast feel it necessary to apologize for having their high alarm set at 150. No, I mean, that's, that's my range. Yes, my range, the range where you're reading it at okay, right.

Ed 1:04:09
My alarms go. My alarms go off at 730 at night and 120 during the day.

Scott Benner 1:04:16
Okay, and that's your 120 is your high

Ed 1:04:19
bar alarm. Yeah.

Scott Benner 1:04:20
So then I misunderstood but then you were like, oh, no, no, I would never put my higher alarm at 150

Ed 1:04:25
No, because it's going to be five but you might actually get the 185

Scott Benner 1:04:29
and then you're then you're in the battle then.

Ed 1:04:32
Yes. And then I'm sitting there going to sit up all night thinking why is this happening and then something whole cycle repeats itself? No, I my alarms are set so I can take option.

Scott Benner 1:04:46
Yeah. Well, I am enjoying this. But I have to take our indoor dentist appointment soon. So I want to make sure that we talked about everything you wanted to except I don't think you wanted to talk about anything so we must be okay. Right

Ed 1:05:00
Yeah, I think we had this was a nice conversation.

Scott Benner 1:05:04
I appreciate it. I thought so too. I and for other people's, you know, Saturday, I didn't ask you. I have one question I'm gonna ask you outside outside, well, nobody don't care but me and you. So I'm gonna, I'm gonna stop the recording and ask in a second. Okay. All right. Thank you so much for doing this. I really appreciate it.

Ed 1:05:23
I appreciate having me on. Thank you so much.

Scott Benner 1:05:30
First, I'm going to thank Ed for being on the podcast. Thank you very much. And then I'm going to apologize to him because at your episode was going to be called out in left field right up until it hit me that your name was Ed and that that horse that talk had a TV show with a song and then I mean, who knows? I'm childish. So this is what happened. You're the famous Mr. Ed. Thanks also to the Contour Next One blood glucose meter, head over to contour next one.com forward slash juice box to learn more and get started today. The meter actually is really great. Like I'm not kidding, it rips, give it a try. Contour next one.com forward slash juice box links in the show notes. Links to Juicebox Podcast calm. I think I could have been an old timey radio announcer I just found a bunch of old radio ads online. I'm going to try one. Quaker Oats. That's a good one. Your best bet for a hot breakfast. Quaker Oats. Let me try again. Let me try again. Your best bet for hot breakfast is Quaker Oats. Quaker Oats. The giant of the cereal is Quaker Oats who wrote this? I like this next part ready? Delicious. Hold on. Let me get a drink delicious, nutritious. Makes you feel what was the rest of it? Hold on. I gotta find out. Me go back.

Hold on No kidding. Delicious, nutritious. Makes you feel ambitious. I'm getting this hold on

I don't get this part but I'll do it again. The giant of the cereal is Quaker Oats

Wait, is it saying if I eat quicker it's I'll be a sports star. Well the second must be what LeBron did. Yes, if you want to be a star that's how it stars

yes, if you want to be a star in sports in school activities, make your hot cereal Quaker Oats. That's a hell of a statement.

Oh, cuz Quaker Oats helps grow the stars of the future. I think I could have done this. This guy had to have been drunk off his ass. Am I wrong? Is I mean who talks like this? Wait, there's some for cigarettes. This has got to be hilarious to our so many four Chesterfields. My dad used to smoke Chesterfields, homes. What is it? Put a smile in your smoking it's as easy as ABC. I can't wait to see what the ABC stands for Hold on.

Because Chesterfields made with accuray are a always milder. Be better tasting. See cooler smoking. Yes, Chesterfield is always I can I could do this forever. I really feel like I've got a job here. All Time Radio ever comes back. Oh, God, I've been doing this for a while. I've wasted your time. I'm sorry. Come back soon for another episode of The Juicebox Podcast. Oh, I did it again, the Juicebox Podcast. Anyway, just there'll be more episodes, please download them. Please. Thank you. Subscribe in a podcast. Thank you until a friend. Thank you. I mean, and leave a review if you like. But only if you really love the show. If you really love the show, wherever you're listening, leave a five star rating and a thoughtful well written and, you know, grammatically correct review that would be really wonderful. Do you want me to ask you with a deep voice again? Are you enjoying the Juicebox Podcast? Go leave a five star review wherever you listen. And you know what would accompany that review? Just nicely. That's right. A Chesterfield King. No, I'm just kidding. A well written review that people could read and see what you think of the podcast. Alright, I think I'm definitely done now. Goodbye.

If you're still here a I think you need more to do with your life like you have too much free time and be I think it's because you want one more ad from Old Time Radio read to you should we go with Should we go with Miracle Whip Cheerios What is this Contadina tomato paste

so much a DuPont chemistry yeah that's funny. Alright DuPont chemistry

Alright hold on a lot of boats there okay I think he says one of the one of the one of the one of the newest this guy's got a mouthful. Buffalo balls. What's he saying? One of the newest of the DuPont companies. Oh better living he's not even it's not the name of the company. He just goes one of the newest DuPont companies better things for Better Living Through Chemistry. That's what he does. He just rolls through it real quick is keel rubberized fabric. This improved in the middle. neoprene rubber. Wow. That's a lot of words to say we came up with a new fabric for your car seat. All right, that one wasn't fun. Find one more hold on Frigidaire Frigidaire, why not frigid. Gunsmoke the TV show? Huh? Frigidaire. While speaking there's nothing to remember about the new Frigidaire refrigerator. This is Wendell Niles speaking Here's something to remember about the new Frigidaire refrigerators made your kitchen made made to fit your kitchen made to fit your needs prior to that, did they make refrigerators that did not fit in your kitchen? Oh Ford Hold on a second

talking about the economy these days when the cost of everything is hilarious these days when the cost is everything is up it's it's great don't afford. afford. Yeah, that's what you need afford. Alright, listen, if you're still here. Seriously, seek professional help. I don't know why you haven't shot this off yet. I'm now wondering why I'm here.