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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:11
Hello friends and welcome to Episode 458 pieces and isn't sure I'm going with it. Hello and welcome to Episode 458 of the Juicebox Podcast. Oh, I was right I just checked. That's exciting. Today's show is with Caitlin, and her story is about much more than her age would indicate possible.

Please remember, while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, please always consult a physician before making any changes to your health care plan, or becoming bold with insulin. I'd like to take this time to thank you for sharing the show with others as it grows and grows march was the most downloaded month in the history of the show. That has a lot to do with you sharing it. And I thank you. I'd like to thank you also for leaving the great ratings and reviews where you listen for subscribing, your podcast app for checking out diabetes pro tip calm as often as you do. That website gets ton of traffic, and I really appreciate it.

Oh geez, I meant to say the show just hit 3 million total downloads. And I had a big celebration here where I'm sitting, none of you were invited. I did not record it. But trust me, it was a whiz bang knockdown affair. And if you were here, you would have a good time. Thanks so much for helping me reach 3 million downloads. Looking forward to many, many more. This show is sponsored today by the glucagon that my daughter carries. g evoke hypo Penn Find out more at G Vogue glucagon.com forward slash juicebox. You can support Type One Diabetes Research and the Juicebox Podcast. Here's how the T one D exchange is looking for type one adults and type one caregivers who are us residents to participate in a quick survey that can be completed in just a few minutes from your phone or computer. These questions are very simple, they only take a few minutes to answer. You'll be contacted annually to update your information and other than that there's nothing to do. This is 100% anonymous, completely HIPAA compliant, and you'll never have to go to a doctor or to a remote site. This is a simple way to add data to type one diabetes research and help everyone living with type one. Just go to T one D exchange using my link in the bio or by typing in T one d exchange.org. forward slash juicebox. Click on join our registry now. Answer the simple survey. And you're all done. T one D exchange research has led to increased insurance coverage for blood glucose meter strips, changes in the American Diabetes Association's guidelines for pediatric a one c goals and they helped bring Medicare coverage to CGM devices. Check them out T one d exchange.org. Ford slash juicebox.

Caitlin 3:16
I am Caitlin Volk, and I am almost 11 years old.

Scott Benner 3:20
When is your 11th birthday?

Caitlin 3:22
May 30 2000. Oh, yeah,

Scott Benner 3:25
yeah, this year, right? Yeah. It'll also be may 30. In 2021 and 2020 to keep going.

Caitlin 3:34
Like the year of sport and everything.

Scott Benner 3:36
You do you want to say it

Unknown Speaker 3:39
was fine. What

Scott Benner 3:39
year were you born? 2000 992 1009. Wow.

Caitlin 3:45
Like in kindergarten, I think I was the last kid to turn six in kindergarten.

Scott Benner 3:50
Do you get like that birthday party like right before the end of the year?

Caitlin 3:54
No, my birthday is always the like second to last day of like, not the second class day, but it's after the spirit of the school year.

Scott Benner 4:04
After that you're not even in school when you have your birthday.

Caitlin 4:07
Yeah, only last year when I was in fourth grade. It was it was the first time my um, my birthday has been during the school year and it was the second last day of school.

Scott Benner 4:17
Did you do anything for it? Bring like food in or have a party? No.

Caitlin 4:22
We just all my friends were saying Happy birthday. And a lot of my some of my friends brought me gifts. And that was nice of them. And then and then I didn't go to the last day of school because we went to Disney for my birthday.

Scott Benner 4:34
That sounds like a better present. What was the best gift one of your friends brought you?

Caitlin 4:40
Um, candy from that line gave me the biggest like a huge bag and I was just digging through it and there's so much

Scott Benner 4:50
well done. Now what gift Did you get from those kids and you don't have to say who it came from, but that you thought Oh, I don't want this. I don't know. You don't know where We'll get to you will find your will find your center here, Caitlin. All right. All right. Tell me how old you were when you were diagnosed with type one.

Unknown Speaker 5:07
Um, oh,

Caitlin 5:10
I believe I was eight years old.

Scott Benner 5:12
Okay. And you're 11 now. So like, Well, almost 11, as we know, on the 30th of may 2020. Right. So like three years you've had type one.

Unknown Speaker 5:23
Yes.

Scott Benner 5:24
I'm not sure you have any brothers and sisters.

Caitlin 5:27
I have one brother. Who's my younger brother. He's very.

Scott Benner 5:33
He's very wide. I'm sorry. annoying. Oh, I'm sure he thinks you're annoying too. By the way. Did you know that? Yes. Are you annoying?

Unknown Speaker 5:41
A little bit?

Scott Benner 5:42
What does he do that bothers you?

Unknown Speaker 5:44
Um,

Caitlin 5:45
he's always like, every single time he does something he thinks is so cool. He goes Caitlyn, Caitlyn. Caitlyn. Caitlyn. Caitlyn. like trying to get my attention. I'm like, I'm in the middle of doing something. Like, tell me when I'm not doing something.

Scott Benner 5:58
Do you know why he does that?

Unknown Speaker 6:00
He just wants to show me what he did. How come? Why does,

Scott Benner 6:03
but why does he want to show you? I have no clue. You want me to tell you why he loves you. And he looks up to you. He thinks you're amazing. True. Like, it's true that you're amazing.

Unknown Speaker 6:15
I don't know about that. I

Scott Benner 6:16
just agreed pretty quickly. You were like, it is true that I'm amazing. No, I that's very likely What's going on? Is he he looks up to you. And you're his big sister. And he's probably really excited to show you something that he figured out.

Caitlin 6:29
Some things sometimes they don't understand him because he likes Star Wars and Legos. And he's like, so this the TIE fighter and this is the x wing fighter. And I'm like, sometimes he tells me things I don't understand. Like, I don't know what it is. Yeah, like they'll say like, this is a Baba Baba, like a character from Star Wars. I have no clue who this is. And I'm like, so wait, what? Who is this?

Scott Benner 6:51
I'm gonna tell you something. Now. I think it's gonna really help you. Okay. So I know this is weird, because you're 11 and I told your mom, I was gonna say anything weird to you. But we're five minutes and I'm gonna say something weird to you? Do you feel like boys? Do you think boys are your jam? Like one day when you're older? Do you think you'll date a boy? Or do you think you're thinking more about a girl? Or do you not know yet?

Unknown Speaker 7:12
Oh, no,

Unknown Speaker 7:13
you're not sure I don't want.

Caitlin 7:15
I don't want to do anything with relationships at

Scott Benner 7:17
all. Yeah, it's good. It's a good place weird. Of course it is. But let me say something to you if you should, at some point, as an older person, like, you know, when you're like 28, or something like that, meet a boy and have relationship with him. This feeling you're having right now. If not understanding what your brother is talking about. That's going to happen to you. Because we don't really change that much. Boys. Just we just get bigger and we have hair on our face. That's really the only and then he's still like there's still going to be like a 30 year old guy in your apartment talking about Star Wars just so you know. It's not gonna get any better than this. This is this is the end of it right here. So your brother's is preparing you really well for being in a relationship later. Trust me. He's gonna bother you and say stupid stuff to you that you don't care about. And you're gonna want him to be around because you like him, but you're not gonna really the rest of it. You just need to like last night for an hour before we went to bed. I tortured my wife while we were watching television. And why did I do it? I have no idea just makes this makes me happy to like pause pause the show and say oh my god Kelly. Did you see what just happened there? That's amazing. This great show. And she just stares the TV thinking in her head. Why did I marry this guy? Just want to watch the show. That's all I want

Caitlin 8:36
to do. I do that sometimes my brother annoy him see

Scott Benner 8:40
things impossible. He's telling you about Star Wars not because he likes you but because he's trying to annoy you. Yeah. I bet you it's not. I bet you

Caitlin 8:48
this morning this morning. He was annoying me a little bit. He was um so we got so since since the the virus going around we had to get computers like laptops for for us so we can do schoolwork.

Scott Benner 9:05
So don't hold that story for a second. Your parents bought you a laptop because of the Coronavirus.

Caitlin 9:11
Well, because the only computer so my dad has a computer that has cords and he can't move it. And then my mom has one which is the one I'm using. It's it doesn't have cords but she takes it around with her everywhere and she's going to be going to work throughout like all of this and I'm going to be with my grandparents and she takes the computer with her

Scott Benner 9:31
laptop. Yeah, Caitlin, this is Coronavirus is the best thing that ever happened to you is that

Caitlin 9:37
Yeah, but my mom but my parents they're like this is only for schoolwork related things only.

Scott Benner 9:42
Oh no, it's not Caitlin. You can do all kinds of stuff with it.

Unknown Speaker 9:47
So

Scott Benner 9:50
what do you think? What do you think you're going to do first when you like sneak around and like like you're going to shop for clothes or what would you love to do if you had full access to that computer?

Caitlin 9:59
Probably just play games. Yeah, play games that I play at school because there's a lot of games that are education that actually are nice and fun.

Scott Benner 10:08
Yeah, I would definitely I would say to your mom, Listen, I've been doing a great job taking care of this computer. And there's this educational game. I want to play with that be okay. She'll say yes to that. And that, yes,

Caitlin 10:19
we just heard this morning because we asked her this morning if we couldn't play something on there. I said, Sure. I told her all about it was like it's educational. It's math. It's fun, like something We play at school.

Scott Benner 10:34
Yes, this is this is how it starts Caitlin right here. So you got what did your brother get for Coronavirus? The same thing you got a computer to? Yes.

Caitlin 10:43
And I know he's gonna smash it because the last computer my mom had, besides the one I'm using, it was this big red one that she had for work. He he so my mom downloaded like Minecraft and Roblox on there for him because he doesn't have a lot of things that he likes to play with. Like, he has toys or whatever. But some of them, he's just not really into anymore. Like still keeps them. And so he um, he was playing I don't know what it was it was Roblox or Minecraft on it. And he, um, and I guess he got so mad at it cuz he every time he plays a game and he like dies or whatever, but it responds him he dies. And then he Oh, he gets so aggravated. And I'm like Cameron, if you're aggravated about it, put it down, like stop playing with it and put it down. And he goes, but I still want to play it and don't get aggravated about it just the game.

Unknown Speaker 11:36
You're saying?

Caitlin 11:37
Yes.

Scott Benner 11:39
He's ever bumped his head? Do you think he has any kind of a head injury or anything like that? Have your parents ever indicated to you that they didn't think he was you know, maybe as smart as you are? or anything like that? They were talking behind his back like that?

Caitlin 11:52
I don't get into their conversations ever.

Scott Benner 11:54
Where do you live? What part of the country? I live from Florida, Florida. And you don't get into your parents conversations?

Unknown Speaker 12:01
Sometimes, but not all the time.

Scott Benner 12:02
My kids seem to constantly be in my conversations.

Caitlin 12:06
I sometimes get into their conversations. I feel

Scott Benner 12:08
like we made a mistake when we were parenting when they were younger. And my I want to do you know, not allow them to have any, you know, opinion, but my wife was like, we have to let them think for themselves. It's like, Oh, this is gonna lead to problems. And then sure enough it did. They have their own thoughts. And they always want to interject them into the conversations. Do you have your own thoughts about things? Sometimes will tell me that when I was Oh, you got a story. Caitlin? Yeah, her box, go to your store.

Caitlin 12:38
My friends would always call me. Miss chatty Cathy, when I was in kindergarten, because I would chat so much.

Scott Benner 12:43
Maybe you can have a podcast one day?

Unknown Speaker 12:46
No, probably not.

Scott Benner 12:47
Why not? You haven't had or you're halfway there. True. Now you need a microphone. Couple other things I can get you set up. Can you imagine if you had a podcast? We just made fun of Cameron the whole time.

Caitlin 13:00
Do you think that would be a blast? I would have so much fun.

Scott Benner 13:06
All the stories you'd call it cutting on Cameron. Right?

Caitlin 13:11
I go to my mom after this and be like, Mom, I want to start a podcast right? Talk about

Scott Benner 13:15
camera and torture my brother, for everyone to hear. I bet you that'd be huge. I listen, if you end up doing that, that's gonna be on the Juicebox Podcast Broadcasting Network. I'm gonna fold that into the be one of our offerings. Okay. Okay, you could be my first other podcast. Can you commit to for a month? I don't know. Jeez, Caitlin. You're letting me down pretty quick here on this. Okay. Well, I take my offer back. So tell me something. What? What's your involvement with your diabetes? Like? Do you take care of it? Does your mom do you guys co do what you do with your dad cameras not in charge of it? I imagine.

Caitlin 13:48
Yes. He's not in charge of it at all. So sometimes he Um, so it's a mix between my parents and myself. So with the Dexcom, I'm linked, so it's my phone, linked up to it. Then my mom, my dad and then my grandma who's one of my grandmas who's a nurse practitioner, who studies some she she studies diabetes and other things. And so we're all linked up to that. So during the day while I'm at school, my mom, sometimes she'll text me and be like, hey, do a Temp Basal increase or Hey, do you a correction for this? Or hey, like either glucose tab, and I'll do it. And so during the they find here at my house, I'll I'll do some stuff and then my parents will do it. But at night, it's my parents because I never hear the alarms that night. It's tough to wake up in the middle of the

Scott Benner 14:41
night. It is so tell me this like if you were going to put your blood sugar right now.

Unknown Speaker 14:48
Oh, good question.

Scott Benner 14:49
That's not a good question. It's a pretty

Caitlin 14:51
taxing. I was texting my friends earlier. Like Wish me luck,

Scott Benner 14:55
because you're gonna be on the podcast. Did they wish you luck? Are they jealous?

Caitlin 14:59
Oh, They're like good luck. I'm not 126 Have you eaten today? Oh, yes, I had breakfast tonight. Before he told

Unknown Speaker 15:09
me what he ate.

Caitlin 15:10
I had a toasted croissant with egg and cheese,

Scott Benner 15:14
toasted croissant, egg and cheese and your 126 How long did you eat?

Caitlin 15:20
I around ate something.

Scott Benner 15:23
So it's been, it's been almost three hours. You're doing great. Yeah, you expect this to go up or come down.

Caitlin 15:30
My mom expected it to go straight up. So she knows a little bit more than I think she was intending to. For some reason today. She told me before I started this, she goes, we probably should have dosed more for this. And I'm like, What do you mean? We should have dose more for that? So I'm perfectly fine. Well,

Scott Benner 15:47
maybe you say to her lady, listen, I'm counting on you. And let's be more decisive. Right. But But okay, so you're perfectly fine. How high Did you get after you wait, was there a peak? Or did you stay kind of level?

Caitlin 15:57
Oh, I did kind of make a peak.

Scott Benner 16:01
You know where I went to?

Caitlin 16:04
I was, I'm okay, I'm going to eight. So I was at like, between the 80s and the 90s. And then it started to shoot up to the highest I got was 140. Some was like 144. And then it started to come down a bit.

Scott Benner 16:20
It just sounds like perhaps your Pre-Bolus was not quite long enough. Is that possible?

Caitlin 16:26
it? It does that a lot? Because when we first started it my mom listens to the podcast all the time. That's good.

Scott Benner 16:31
She should By the way, everyone should. And if and if anyone's listening right now, should they not subscribe to right in their apps? Yes. Yeah, right. Okay. I'm sorry, Caitlin.

Caitlin 16:42
My mom was listening to one of the one of your podcasts episodes. I don't remember which one it was. But the one I remember talking about Pre-Bolus thing was with Tommy, Tommy,

Scott Benner 16:51
I think it was actually called Tommy. But yeah, good.

Caitlin 16:55
And so she so when we, when my mom first heard of it, she was like, No wonder why she's picking up at school like he's going straight up. I should Pre-Bolus. So when I'd wake up, and my parents, I would tell him what I was going to eat in the morning, possibly cereal or like toast, I would, they would dose for it. And then I would like take a shower, get dressed, do whatever I need to do in the morning. And then I would come out and I'd be perfectly fine. Till them later on it. We stopped doing that. Because as I was getting a little older, I was waking up early, and like taking showers getting dressed and doing all that and then I would go out towards round seven go out and tell them what I was going to eat.

Scott Benner 17:36
So So you were Pre-Bolus Singh having good success with it. But then when you got to a certain age, you decided you wanted to be clean before you went to school. And that messed up your Pre-Bolus. What does that tell you about showering?

Unknown Speaker 17:50
Hello, I have no clue.

Scott Benner 17:54
Caitlin. So Alright, so now you're you're you're prepping in the morning. It's taking a little more time. And that time was when you use the Pre-Bolus. So have you fixed it? Because I'm assuming you figured out you need to Pre-Bolus right. Yeah, yeah. So what have you done to adjust your daytime, your morning ritual so that it works better?

Unknown Speaker 18:14
Yeah. I'm

Caitlin 18:18
just stayed the same. Until then. Sometimes in the morning. Like on weekends, I will wake up at a specific time. Like I it switches around. So sometimes if I wake up at like, seven in the morning, we'll Pre-Bolus and then I'll do something and then I'll eat sometimes if I wake up later. All right. When I wake up I want to straight eat.

Scott Benner 18:40
Yeah, well, what your mom, so. So five minutes before you and I started talking. Arden came wandering in here. And she's on our way downstairs because she's Of course going to school from my kitchen now. The Corona university we have downstairs in the area, and she's like, I'm hungry. And I said, Yeah, you look hungry. And she's like, she said, Can you make me something? I said that I can't. I'm about to record a podcast. And she's like, Alright, well, I'm just gonna have cereal then. I was like, Yeah, alright, so I said, you know, Bolus and then wait at least 15 minutes or until you have an arrow that's going down. And she was 120 when I told her that. Yeah. And so she did Bolus I'm looking at it here. I like to have Arden's graph up while I'm doing the podcast in case that comes up. And she's 109 right now, I don't know if she started out or not. But she had to Pre-Bolus and she looked at me when I was like you have to Pre-Bolus this is gonna be a mess. And she made a little face. Like, you could probably imagine the face was a little scrunched up irritated face because she just wanted to eat. And I said, and this is a quote from me, Caitlin, I said she made the face and I said, Shut up, right like that. And she didn't actually say anything. So then our little face tightened up a little more, and I'm like, get out of here and just Pre-Bolus. And, and everything's going right. And meanwhile, she's fine. You don't I mean, like, she doesn't want to wait, but it's not killing her. It's not changing. It's not making her upset. You need to wait. You can Yeah, you can do it.

Caitlin 20:16
With me sometimes, like, if I'm somewhere I'll get really hungry. Like, if we go to Disney, I'll get super hungry, because I've been walking or running or doing whatever that whole day, I'll get so hungry. And then my parents are like, okay, we're gonna Pre-Bolus and you're gonna wait. And I get so aggravated, because I'm like, one, I'm hungry. And to sometimes as I'm waiting for my blood sugar to go down, or for me to be ready to eat my like, my friends, because I like to go with my friends. I've seen them all eat, and I'm like, I just want to steal something and eat is

Scott Benner 20:50
there's only one little thing you have to change to make this all work. What is it, you know? Pre-Bolus before you get there, just think ahead a little bit more. That's all and even if it's just a little bit of insulin, because I hear what you're saying. Right? Like, you don't always know what you're gonna eat. Right? But let's say this, when you eat, do you ever eat and only need like a half unit of insulin? Don't you mostly need like a couple of units when you're eating? Yeah, right. So what if you just were like, Oh, let me just slip in a little bit of insulin here. So I get some of it going. And then we can go get the food, and then put in the rest of the insulin. And then I can start eating with my friends because I still have a little bit of a Pre-Bolus Yeah, it's a good idea. You know what I should do? I should probably record these ideas and put them on the internet so other people can hear them. Don't you think though?

Unknown Speaker 21:42
Yeah. Hey,

Scott Benner 21:43
what's it like living close to Disney? Is it just like a regular stop for you guys?

Caitlin 21:49
Um, we go, we go. Not really a lot. What we do go a lot a year, but it's always like, like months in between? Yeah.

Scott Benner 21:59
Well, you're not there every weekend. Yeah, yeah. But you know, for instance, most people listening go once every 10 years. You get to go cleanse you because it's near your house.

Unknown Speaker 22:07
Yeah.

Scott Benner 22:08
What's your favorite thing there to do?

Caitlin 22:10
My favorite thing to do is just go to the rides and meet the characters. That's the one thing I want to do every single time. What's the best ride?

Scott Benner 22:20
Well, let's go which one's the best and we'll work our way down.

Unknown Speaker 22:22
So many.

Scott Benner 22:26
Shut your eyes. Shut your eyes. We're at Disney. You're only allowed to go on one ride. Okay, what are you going on? There you go. See you. Later that falls, right?

Caitlin 22:38
Yes. I only went on it once in the ride on the wait line because we had a fast pass for it. I was so scared. I was like, Dad, dad. I don't want to go on this. Mom. Take me off. No. I even said I thought I was gonna puke. Because

Scott Benner 22:57
Do you think that part of what makes the ride great is the time you have to spend wondering about what's going to happen on the ride. Yes, yes. Right.

Caitlin 23:05
Because I because for some reason to me, when I go on a new ride, I think it's more scarier than it actually is. Tap here I thought it was gonna drop you from like the very top and you drop straight down to the floor. Right? So but really, we go on the we go on the smoother part of it, which I had no clue. We just went up and down, up and down halfway to the very top, like almost halfway to the very top and we just chopped down.

Scott Benner 23:31
This guy to scream. No. Did your blood sugar go up afterwards? Yes. You know why? nervousness? adrenaline? Yep. You know what adrenaline is?

Caitlin 23:43
Yeah, it's when you're like, freaking out nervous. Like, no, no, it's pumping.

Scott Benner 23:48
It could be anything. It could be like if you're excited to. Let's see if you can be excited, like in a sport. Do you play any sports?

Caitlin 23:58
Yeah, I don't know if dance is technically a sport. But yeah,

Scott Benner 24:01
listen, people are gonna tell you it is and if I don't say it is people are gonna get mad at me. But you know what I mean? It might not be I'm just kidding. Adrenaline is a hormone right? So it just big stress. Blood circuit eating eating increases like your rate of blood circulation breathing. The way carbohydrates are metabolized. It's prepping your body right to be like to like take off. Yeah, right like so it gets you all jacked up and then there's then there's nothing to do. So

Caitlin 24:32
my mom on Facebook, I was getting my ears pierced. And my mom was looking through her Facebook and I was there with her because she was showing me something. And I saw her posts and it was me have a picture of me to get route ready to get my ears pierced. And so it was me before and then she showed and then she showed the my blood sugar before perfectly fine. And then she goes and then it's the it's like the before and the after. It's my blood sugar, just shooting straight up. She goes, she was lying about herself being nervous because it's going straight up.

Scott Benner 25:06
Were you calm on the outside?

Caitlin 25:09
I said I was I was a little nervous but mostly calm.

Scott Benner 25:12
I was just like, in your face. It's not great. You know?

Caitlin 25:17
That's not my dad said it would be. It wouldn't be that bad. It

Scott Benner 25:21
hurt a little he lied to you so that you'd be comfortable. Yeah, you're starting to figure that out about parents.

Unknown Speaker 25:28
Gonna be like, it's gonna be fine.

Scott Benner 25:29
They told you like this Coronavirus is no big deal. Just you getting a laptop, right? Yeah, yeah. Do you think? Do you think that's true?

Unknown Speaker 25:37
sorta.

Scott Benner 25:38
I sort of think it's true. I sort of, I sort of, I'm like, I wonder what's gonna happen. Are

Caitlin 25:45
you very good. I'm very indecisive about things. You're 11

Scott Benner 25:50
Yeah, your brains like mush. It's not even a full brain yet. Yeah, you're doing really well, by the way for being 11 This is a good conversation. Yay. Yeah. Tell you. You want to tell me something? Yeah. All right. I was gonna say some but you go first.

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I just need to remind you to go to T one d exchange.org. forward slash juicebox. And check out all of the other sponsors of the podcast. They're all right there in the show notes of your podcast player links to find out if you're eligible for a free 30 day trial of the Omni pod dash or in there there's a link to learn more and get started with the Dexcom g six continuous glucose monitor. You can find out about touched by type one.org g Volk hypo pen, it's all there right there in the show notes. There's also links at Juicebox Podcast comm to check them all out. And don't forget while you're there, that Contour Next One blood glucose meter good test and with that Contour Next One, you're gonna love it. All the links again, aren't Juicebox Podcast comm they're in the show notes of your podcast player or you can just type them into your browser. I'm not gonna make you listen to them here. But just remember when you hear him on another episode, you know, I'd like to support the podcast I will get a meter I mean don't get it if you don't want to but check it out at least the meters freakin terrific. And the other stuff my god are you kidding me a free 30 day trial the Omni pod dash Can you imagine if you're eligible for that? Check it out. And the Dexcom g sex you just know to get that stop it. Elizabeth was just on the other day from touched by type one. You heard her she's delightful touch by type one.org. All right, let's find out what Caitlyn wanted to ask me. Thanks so much for listening, guys. I really do appreciate it joking aside, your support of the show is evident. And I really appreciate it.

Caitlin 28:43
You remember when you did the for dancing for diabetes that caught that? Call? Not conference that that talk. Orlando.

Unknown Speaker 28:52
Were you there?

Caitlin 28:55
Oh, you you remember when you're asking about what's your favorite food? And that was the first in the first girl you talk to? That was me. Wow.

Scott Benner 29:03
How long was that last year? The year before when? I was good last year. You're lucky. Yeah.

Caitlin 29:10
The only reason why we went there because she was like, I go mom. So why is the reason we're going to Orlando and she goes because Scott Benner is gonna be there and I'm super excited. And I'm like, Oh, she's so sweet. Yeah, it's I had never heard of you. At the time. Well, I'm

Scott Benner 29:26
48 year old guy doing a podcast about Type One Diabetes near 11. So that makes sense. Don't you?

Caitlin 29:32
My mom showed me your podcasts and I was like, I was like was like

Unknown Speaker 29:36
my mind is blown. Do you listen? Yes.

Scott Benner 29:39
Hey, can you do me? Can I pick showers while you take showers you listen to podcast real quick before we go and he do me a favor. Can you say everyone should check out touched by type one.org

Caitlin 29:52
everybody should. Everybody should check out touched by pipe one.org.

Scott Benner 29:57
That's great because Scott's gonna be speaking there in May. Again. Yeah, now I don't have to put the ad in this episode. Thank you so much. Everybody that was an ad Just so you know, I'm not paying Caitlin, but I am making money for saying that. So

Unknown Speaker 30:10
I subscribed so I'm good.

Scott Benner 30:12
Thank you. Sometimes there's episodes that are not good for kids. Does your mom make you skip those? Yeah, to like, you know, once or bad or not. Oh, she come tell you like, Hey, don't listen to this week's Oh, sometimes. Oh, one of them's coming up this week, by the way, just so you know.

Caitlin 30:31
So the only ones I listened to her the ones with kids? Oh, I know aren't gonna be that bad.

Scott Benner 30:37
Yeah, I don't think well, I'm different. I guess I talk to my kids differently than other people do. Maybe. But I don't think any of them are bad. Some of them are just maybe like topics that are. You know, you're not ready for yet. But you will be one day.

Caitlin 30:51
One of one of them that my mom told me not to do is the um, the after dark or whatever.

Scott Benner 30:57
Yeah. You told me don't listen to those ones. Did you? Did you like look at them and think maybe I'm gonna listen Anyway, I hope you didn't.

Caitlin 31:04
I looked at them. And I was like, Okay, I read the little bio. And I was like, No. Okay.

Scott Benner 31:09
So what was so there was one about smoking weed. So that one and one about, like, nope, yeah. And there was drinking and there was one about a person to had like a tough life.

Unknown Speaker 31:21
I was like, no, not during those. Yeah.

Scott Benner 31:23
The next one's gonna be about sex. Don't listen to that one either. Oh,

Unknown Speaker 31:25
yeah. Yeah. Okay, good.

Caitlin 31:28
So that's my favorite ones are the one of them is loop de loop. That one about melody. You liked melody? Yeah, I like that one. That was fun.

Scott Benner 31:37
Yeah. I thought that was a weird conversation. But it was. When it was over. I thought, I don't even know what we talked about. And then I listened back to it and edited it. And I still didn't even know we talked it out. But I was like, it's good. And people like it. So.

Caitlin 31:50
And also Megan makes peace number 294. That one's fun.

Scott Benner 31:54
Yeah. Do you like it? What do you like better when? Like, do you like when people say something that you're like, wow, I never thought of that before. Do you like hearing about managing diabetes? What's your favorite part?

Unknown Speaker 32:06
All of them.

Unknown Speaker 32:07
Thank you.

Scott Benner 32:10
Do you listen to any other diabetes podcasts?

Caitlin 32:14
Well, that's the only one that I know of.

Scott Benner 32:16
Right? That I know when there is really?

Caitlin 32:18
Yeah, yeah, there's there's other ones but they're like people. I don't know.

Scott Benner 32:22
Yeah. Those aren't real podcast. Those are something. This is the one you've got the right one. This is the only podcast that serves children episodes about smoking weed. Yeah, it's it's not really what it was about. By the way. Do you want me to tell you what it was about? Yeah. Okay, I won't one day when you're ready. You know, you can go check them out. Do you know I've never done any drugs in my life?

Unknown Speaker 32:50
No, I never knew I

Scott Benner 32:51
never once asked me if I drink.

Unknown Speaker 32:55
I'd say yes. I don't.

Scott Benner 32:57
Not at all. But not even a little bit. Yeah, like people just like, oh, I'll have a beer. I don't even do that. Yeah, not even a little. Nobody in my house drinks. Actually.

Unknown Speaker 33:09
My mom and

Scott Benner 33:11
ycm Creek. Are your parents alcohol? Should we need help?

Unknown Speaker 33:14
there? No. They don't do it a lot. But sometimes

Scott Benner 33:18
fancy places they will fancy places. Your parents like to get a little like, a little liquor. Like of it. Yeah, just get going a little bit. Plus, you're in Florida, there must be a law about drinking that right? I have no. Do any of your friends drink? No. Good. That's good. And if they did, hanging out with them, right. But if they if they started, you'd have to stop hanging out with them. Right?

Caitlin 33:42
Probably. I'd be like I'm not hanging out with that could

Scott Benner 33:45
be a difficult decision, but that'd be a good decision for you. So what do we need to know here? What kind of gear do you have for your diabetes? Are you shooting insulin with a pen? Do you have an air pump?

Caitlin 33:57
I have a Omni pod. Nice. I started with the syringe then then pen and then the Omni pod.

Scott Benner 34:06
What's been your favorite way so far? Omni pod? How come?

Caitlin 34:11
Because it's so part of the reason is because at school I have we have nurses. And so our lunch every single time It starts at a different time, like different grades sorts of different times. But what's hard is we always go outside first. So I'll have to come outside and then run to the nurse's office and and take insulin and with the Omnipod I don't have to go to the nurse I can just follow the line. I can just follow my line to follow the line to go into to go into the lunchroom and I just sit down with my lunchbox. My all my dad he writes the carbs on E right how many carbs it is on the bags of of them. Or if it's like a pack of goldfish it will say the carbs, add it all up and put it on Omnipod Wow.

Scott Benner 35:00
That's really great. And so that keeps you from having to go to the nurse's office and from having to inject while you're at school and things like that.

Caitlin 35:06
Yeah. And then it wastes a lot of my time for lunch because I'll get there and they're like, because sometimes I'll get there and my class has already started like all my all my whole classes already. They're starting to eat and I'm still like in the nurse's office still shooting insulin at me.

Scott Benner 35:22
Yeah, that's x plus you get the Pre-Bolus a little on the way to your lunch. That helps Hey, real quick Caitlin, if you could just say Find out more at my on the pod comm slash juice box that'd be great. You don't have to wait what I'm just joking. Do you want to do it it's my on the pod but even deep in your voice little bit go in. To find out more about the Omni pod and to get a free no obligation demo of the Omni pod go to my like that good.

Unknown Speaker 35:45
I can't remember.

Scott Benner 35:47
Nevermind. Hold on a second. I have to hear my voice. Do you think I got the Coronavirus? No, I don't think so be that I've been locked in this house for like a week and a half. Let somebody Yeah. What have you been

Caitlin 36:03
like to just? We went to Disney for a full week. So we were out of the house.

Scott Benner 36:06
Wait a minute. let's admit to that people are gonna get mad at you so far. People have liked you.

Caitlin 36:11
We record we were quarantined in the hotel room for five days. Because we were there. You were there. Because we were there for a whole week Friday to Friday of last week. And so the parks are only open so for us. The parks were only open for those two days because they closed Sunday afternoon. Okay. We had went there. So Friday, we went to Disney Springs. Saturday we went to where did we go? We went to animal kingdom and then we went to Hollywood and then we left. Then we went back after Hollywood. We went to Disney Springs because I guess they were closing that Monday. So we just went there, bought everything we needed to do and then for so we did part of Monday went back then that part of Monday, Tuesday, Wednesday, Thursday, Friday. We just stayed in the hotel room and left Friday morning. So you

Scott Benner 36:59
know it's interesting. So you live Friday morning, by the way anybody who gets Coronavirus in Florida it's Caitlin's fault. But wait, see you Friday morning on the 20th. Probably. Um,

Caitlin 37:11
it wasn't morning. It was after lunch.

Scott Benner 37:14
Was it last Friday, like just past weekend or the week before? The week before? It's the 13th so you know, you actually won't know. So you've been in your house since then.

Caitlin 37:25
Oh, yes. Since we came back. We've been stuck in the house for a little bit.

Scott Benner 37:28
Yeah, more days. You have to wait to see if you have Coronavirus. Did you know that takes two weeks to know if you have it or not? Oh, no. One more than what you're doing great. You probably don't.

Caitlin 37:38
Have you had some of us I've been coughing and everything but it's not too severe. Just like a little younger adult.

Scott Benner 37:44
Do you think I can tell you? The first time I saw yo yo Ma and concert was at Carnegie Hall. I've just had a lot of words you might not know. Yo Yo, yo yo ma is a cellist. He plays the cello. And Carnegie Hall is a very famous space. In New York City. There's that cough that's your Corona right there.

Caitlin 38:04
No, Mike. I was drinking water whenever I'm

Scott Benner 38:07
Coronavirus. Now. We're in Carnegie Hall watching yo yo ma perform. Okay. And there's a guy in the row in front of me a little to the right. And every time he started to play the cello, this guy would go. And then when he'd stopped playing the cello, he never that never happened. So I think that sometimes people can feel so much pressure to be quiet, or to not cough that they do it. Like kind of subconsciously.

Unknown Speaker 38:41
That's weird.

Scott Benner 38:42
Don't you think? That could happen? Because why? Why was he able to be quiet when he wasn't playing the cello? Yeah, right. He wasn't a jerk. He wasn't doing it on purpose. It was just as soon as he knew he had to be quiet. He couldn't help himself.

Caitlin 38:57
I bet you he was uh, I bet you that dude was probably a really good person, like a good like a person and really into music. Well,

Scott Benner 39:05
I don't think a lot of people end up at Carnegie Hall watching a cello if they're really into it. That's not something you go to by mistake. Yeah. I

Caitlin 39:11
mean, it was my mom decided she liked the cello. So we'll go there.

Scott Benner 39:16
Yeah, yeah, I don't think so. I saw. I also saw um, yo, yo, ma. Wow, it's been a long time already. No, I was just looking up. My tickets up here. Oh, isn't that weird? Like, I feel like I saw him last year around Christmas. But it was two years ago at Christmas play. Yeah, I bought a poster and had it signed and it's hanging up right here while I'm working. So I was there on November 29 2018. He played all six sweets of the Bach cello. It's beautiful. Do you want to hear? Sure. I don't think I'm allowed to play music on this. I think I'll get in trouble. Don't think I'm allowed to do that. By

Unknown Speaker 40:03
playing I can't hear it. I

Scott Benner 40:04
wonder if you can hear it. I don't even know if you can. I don't know how that works. I haven't turned it on yet. Caitlin.

Unknown Speaker 40:10
Oh, cool. I was gonna say if it's turned on, I can't hear you calm down for a second.

Scott Benner 40:14
You're very excitable. Yes. I'm gonna play it for you. I might have to mute it out on the like for people people listening might not be able to hear it, but you will be able to hold on a second. So I think you're going to hate this, but I'm I'm interested to find out.

Unknown Speaker 40:35
Is it going to be loud?

Scott Benner 40:36
I don't know. Okay, I've never done this before. Hold on. Wait. Can you hear it? No.

Unknown Speaker 40:46
I only hear you.

Scott Benner 40:48
It's coming through my headphones. Hold on tight. Could you hear it? You couldn't hear it? Dammit. All right. Anyway, my favorite thing,

Caitlin 41:15
the things we can't do on a podcast.

Scott Benner 41:16
Well, apparently I could do it. But I'd have to do a whole thing. Because I really don't know how I would do it if I've never tried that before. Anyway,

Unknown Speaker 41:26
something.

Scott Benner 41:26
The unaccompanied cello is my favorite instrument.

Caitlin 41:30
I kind of know what that is.

Scott Benner 41:33
Don't just that. It's like a giant violin. It's like a giant violin. Okay. But if you told me, Scott, you are going to be stuck on a desert island for the rest of your life. And you can only take one piece of music with you. I would take the cello makes me happy. And sometimes I start like getting a little teary eyed for no reason because some of the notes hit me like really deep in my heart. It's lovely. Maybe one day you will you will find it most likely not.

Caitlin 42:02
Yeah, I'm not very I'm not really a music person.

Scott Benner 42:06
Well, I'm you're gonna be dead anyway for the Coronavirus. But you know, so you have a very good sense of humor for an 11 year old by the way. So are you nervous about this stuff at all?

Unknown Speaker 42:17
diabetes, for diabetes, I

Scott Benner 42:19
was gonna say Corona and but didn't tell me what you're thinking about around the whole thing.

Caitlin 42:24
So I heard him I'm a little nervous about the Coronavirus because I don't know if I misheard this, but I heard it while we were at Disney. We were eating dinner and the newscast was on. And it said people with diabetes have a really good chance of dying if they get the Coronavirus. And I'm like, What? I walk out of the room. I go, mom, I think they just said this on the news. But I think they said if somebody would if somebody with diabetes gets the Coronavirus, they have a chance of dying and I'm like, I'm so nervous. Almost like nope, nope, not never going out. It's hotel room ever. But I did.

Scott Benner 42:57
Well, so here's what you would you know what you'll find out if you actually listened to the episode that I've done a couple episodes about Corona. And yes, people with diabetes are at an increased risk. But that takes into account the people who are maybe not in as healthy of a place. So I think that for someone like you who is young and otherwise healthy and whose blood sugar's don't go over 126 when they eat a croissant egg, and I think you're going to be okay, that doesn't mean you can't get it still. I don't think it means that you're more likely to get it because you have diabetes. I think it means that if you get it and you have diabetes, and your health is not good, it might be more difficult to fight off. But the truth is if you have diabetes and your health is not good in general, other illnesses are also harder to fight off. I also think that when the media says diabetes, they often mean type two diabetes.

Unknown Speaker 43:55
Yeah,

Scott Benner 43:56
that's what I was thinking never get a full explanation from them about Yeah,

Caitlin 43:59
just like diabetes Coronavirus risk of dying each one

Scott Benner 44:06
well you know what you shouldn't do probably you shouldn't go to like Tower of Terror during so where you guys just trying to sneak it in under the under the thing they're trying to get a little fun in before you're gonna get locked up. Yeah, yeah.

Caitlin 44:19
Because we were planning before before the Coronavirus was even like in the United States, we had already planned it. We were like, Oh, it's not gonna get in the United States at all. We were planning that whole week going to Disney. Like we had it all planned out like magic kingdom would be like Tuesday, and looking will be like Thursday. We had it all planned out until they until we got the announcement saying the night before we left. That before we left we got it. We got a like a notification from Disney saying that they were closing the parks Sunday off sudden like at 12pm 12am they were closing all the parks.

Unknown Speaker 44:57
You know my heart was broken

Scott Benner 44:59
or something Crazy. I just realized there's a person who listens to this podcast, who was also at touched by type one last year in the same room you were in where you asked your question. Who dances at? Animal Kingdom? She's a performer, Animal Kingdom. And that crazy?

Caitlin 45:19
I don't recognize very many people at Disney that I know.

Scott Benner 45:22
Yeah, you wouldn't recognize her. But that's what she that's her job right now. That's what she does. Oh, that's cool. Yeah, I thought so. So he just realized that he said, Okay, so what are your goals here for diabetes? When life goes back to normal? And you know, everything or even now? Do you want to be in charge of your insulin? Like, what is your desire around that? Do you wish your mom wasn't involved? Do you like your mom being involved? How do you like it? Like,

Caitlin 45:48
I like my parents being involved? Because a lot of the times, like at night, perhaps I can't hear you alarms. And I would never know. Like, if my parents weren't involved in this, I would never know that my alarms weren't going off.

Scott Benner 46:02
Do you get but what about during the day when you're awake? Would you like this start being in charge? Or? No?

Caitlin 46:09
I guess sometimes they'll be like, give yourself a correction. But then the, but then sometimes, they'll be like, give yourself a correction. I put my blood sugar and on the Omnipod. And there and it says not gonna give me anything. So I go like, What? How much do you want me to give me? How much do you want it to give me it's saying when I put the blood sugar, and it's not going to give me anything? But my parents still want me to give a correction. Because if I don't, it's still gonna go up.

Scott Benner 46:36
So it gets it doesn't get a little confusing when the when your pump says one thing and your parents say another thing? Yeah, yeah. Do you think? Let's see, do you want to go to college one day? Have you ever thought about that?

Caitlin 46:48
I do want to go to college, but I feel like I would want to go with my friend Sophie. Who's because we both want to be bakers. So thought why don't we go to like college for like coronary school. And also she's very like, at school. She's very strategic about my diabetes. She's like, She's like, Caitlin, your alarms going off? Are you alright?

Scott Benner 47:13
She pays attention to it for you.

Caitlin 47:14
Yeah. It's like she puts her friends before her almost. Oh,

Scott Benner 47:19
that's kind of nice. Does she? Does she do that with a lot of life or just with you in with a diabetes?

Caitlin 47:25
I have no clue. But she does that a lot. Like if we're like, if one of us like fallen were hurt and we're like bleeding. She'll, she'll be the first person zoom over like the flash and go. She'll be the first person over there.

Scott Benner 47:38
Which flashes your flash? kailyn. Which one? Do you like the best? Like the guy on the show? Grant Gustin I just say that you just say the flash, you don't have an attachment to it at all?

Unknown Speaker 47:49
No, I don't really I'm not into superheroes at all. Very nice. I'm

Scott Benner 47:53
looking at baking schools for you. Oh, hey,

Caitlin 47:57
Sophie and I were planning on starting our own bakery company called the Baker's to,

Scott Benner 48:04
like your own shop.

Caitlin 48:05
Yeah. But we were still planning on where we want to do it. We were thinking New York. Yeah, you already.

Scott Benner 48:14
You're already planning on leaving your parents?

Caitlin 48:18
Yep, yeah. But I'm not really leaving my family because a lot of my family lives up and on my dad's side. A lot of my family lives up in New York. So I won't be that lonely. Okay.

Scott Benner 48:29
Johnson and Wales has a campus in Miami. It's a good cooking school. They have Baking and Pastry Arts there. He tend to one faculty ratio. This is good. Alright, we'll write that down somewhere because you have a couple years so. Yeah. Right now you're just trying to get through middle school and stay away from boys? Pretty much. Yeah.

Unknown Speaker 48:54
almost about to go to middle school.

Scott Benner 48:57
Really? So what grade right now? You're in fifth grade? Yeah, Caitlin. I have been lulled into believing you're 32 years old while we're talking. Don't laugh. I wasn't kidding. Oh, you sound very like mature. Why are you the oldest? You're the oldest, right? There's just two.

Caitlin 49:20
Yeah, I'm the oldest of my brother.

Scott Benner 49:22
You boss him around a lot. Yes. Yeah. All the time. does it bring you a real pleasure to tell him what to do? Yeah, because my wife looks happy when she's telling me what to do.

Caitlin 49:32
Cuz when I tell him what to do. I feel like the adult.

Scott Benner 49:35
Oh, you like being in charge? Yeah, yeah. Caitlin, I think that's a psychological issue. But you're too young to worry about it right now. No, seriously, I am. When my wife's telling me what to do. She never looks happier than in that moment. She loves to. She also likes to be right. Do you like to be right?

Unknown Speaker 49:55
Sometimes, not all the time.

Scott Benner 49:57
Does it make you happy to be right.

Caitlin 49:59
It Because then I feel like I knew something that I knew was right. And I do that a lot.

Scott Benner 50:05
Yeah, you're right a lot.

Caitlin 50:07
Um, I, because sometimes we'll be late. Like, if we're doing like a fast pass or whatever, we'll be late for something. And I'll be like, and so my mom, like, we're almost about there. And then she'll be like, why don't we take another route? And I'm like, What if we take this route? We get there quicker. And then sometimes we'll be late for it. And then I'm like, Well, I was I was right. We should have done that.

Scott Benner 50:30
Is it more satisfying to be right? Instead of your parents or your brother? Like, who do you like to be right? More? Correct, then?

Caitlin 50:38
My brother, your brother? Cuz it makes me feel smarter than him?

Scott Benner 50:41
I gotcha. Well, you're older than him. So that makes sense. Right? Yeah. Gotcha. Is your dad very involved with your diabetes? Besides the the carbs and stuff around lunchtime?

Caitlin 50:53
Yeah, he's very. He's very old to it. Sometimes.

Scott Benner 50:58
It doesn't you like that they're involved?

Caitlin 51:01
Yes. I love that they're involved.

Scott Benner 51:03
Do you want them to be involved? forever? Yeah.

Caitlin 51:08
For long for it till I die.

Scott Benner 51:11
Well, what about this? Let's paint a picture, right? We get we get past this. We find some boy eventually, one day, like 20 years from now. And he stops talking about Star Wars long enough that all right, I can go out with this kid. And you're at home with him and you're married now and it's time to eat. You're gonna call your dad and ask him how to Bolus?

Caitlin 51:32
Well, first of all, I'd have to teach the boy I'm with I'd have to teach him how this works.

Scott Benner 51:36
You're gonna expect them to help you too.

Caitlin 51:38
Yeah, I would expect him. I mean, he's living with me.

Scott Benner 51:41
100%. That's good. I don't disagree with you. I was just asking. I think that one day, you should meet somebody who cares about your health and yeah, be willing to help. That's very cool. Wow. I think we've learned a lot here. Caitlin, don't you?

Unknown Speaker 51:56
Yeah,

Scott Benner 51:57
yeah. Have you said anything you wish you didn't say? I don't know. Remember when you admitted to spreading the Coronavirus from Florida?

Unknown Speaker 52:05
Oh, yeah. I kind of get that a bit.

Scott Benner 52:12
I'm not laughing at you. I'm just laughing. Have we talked about we missed anything? Is there anything you'd like to talk about that we haven't spoken about?

Unknown Speaker 52:21
so much? Um,

Scott Benner 52:27
what would you want other kids to know about diabetes? That kids that that have it that maybe you're struggling and like because you don't sound like you're struggling with it? You sound like you're pretty okay with this.

Caitlin 52:38
Um, don't be scared or nervous about it? Because you'll get through it. And you'll be perfectly fine. Once you're through it.

Scott Benner 52:49
You think people worry? Did you ever worry?

Caitlin 52:51
I did worry a lot.

Scott Benner 52:53
What was your concern?

Caitlin 52:57
Like it wasn't going to get it was going to get worse from where it was

Scott Benner 53:02
like your blood sugar's would just go out of control, and you wouldn't be able to fix them.

Caitlin 53:07
I have basically the whole thing. I just, I don't know why I got really nervous when I first thought of it. Because part of it was because I never liked needles. I was a little kid. And then figuring out I had to take shots every single day and prick my finger every single day. I was so nervous. I was like, I'm never I'm never gonna get anywhere from this.

Scott Benner 53:29
I've never met anybody who likes needles. But it's funny. It's funny when people talk about it. People are always like, I was one of those people who didn't like needles. And I always I never say it. I'm saying it to you now. Right. But I've never said it before. I always think are there people running around who enjoy getting stuck with needles that I don't aware of? Like, it's a it's a funny thing to say it's like, you know, it's like saying it's like, it's like saying, you know, I'm not one of those people who likes falling into a volcano. Yeah, no one likes. Okay, right. Right, right. But there's no one around. It's like, Oh, you know what my favorite thing to do is, I love to fall into a volcano. The best thing ever. You don't hear that. But everyone always starts with that, like, well, I'm just one of those people who doesn't like needles. I'm afraid of needles. Like, yeah, we all are afraid of getting something stuck into us. You don't I mean, I think it's the level of tolerance you have for it. So when this is all going on, when you're first diagnosed, and there's needles coming at you when you're like eight years old and everything, and does it feel like Do you remember how it felt? It's such a weird question for somebody. Yeah. But what does it feel like to get diabetes?

Caitlin 54:38
I was so scared because I thought that because I knew my life was my life was like turned upside down. And it was going to be stuck with me my whole life. And I just thought, okay, I didn't know I had no clue about the Dexcom and Omnipod and what they did. So I just thought you had to take shots and needles every single day and I would be living For this, I have been living with this for like, I thought I would be living it for like my whole life just doing shots and needle shots and needles without the Dexcom an omni pod, because I had no clue those two exist existed at the time.

Scott Benner 55:12
So just it's scary to feel like this is this is the rest of your life. And it's always like this. And is it better now the way it is now? For you?

Caitlin 55:20
Yes, it is very, very happy. And because I don't have to do that every single day. Now, how often

Scott Benner 55:26
do you think you get shots now? Do you still get a needle once in a while? Nope. Not at all.

Caitlin 55:32
Unless if my Omni pod fails, and we don't have an extra pod by mom will have a vial? My mom will keep a vial of insulin and syringes in the bags just in case something goes wrong.

Scott Benner 55:45
Yeah, but it doesn't end up happening very frequently to

Caitlin 55:48
that much. Unless if my unless of my we don't have to change the Omni pod. And the insulin went bad and like my blood sugar's keep going up after having like 50 units in me. She'll have that sometimes.

Scott Benner 56:03
What about tea? Um, how often do you end up testing with a meter?

Unknown Speaker 56:09
I'm

Caitlin 56:11
not very often sometimes when I go swimming, and I'll have to eat like, right when I get out my Dexcom it wouldn't link up to my, my phone. And we'll be eating like right when I get out. So I'll test their error or if my arm or if my Dexcom falls out, which did happen over though, over the last weekend. Okay. Oh, and I went to Disney.

Scott Benner 56:34
So if there's a some sort of a breakdown of the technology, you go back to it. Yeah. Do you ever just check to be sure I think Arden tests probably. I bet your heart and soul tests about 15 times a week. But it's usually clustered on days where the CGM is either newer or older.

Caitlin 56:57
I do sometimes because it my Dexcom it's sometimes it gets confused, it gets a little confusing because it will say I'm at like 45 double arrows down when I feel like I'm at 90. So we'll test there like if, like, it'll be like, my parents will be like, are you do you feel fine, because it says you're at 45 going down going down and I'm like, I feel fine. I don't feel dizzy or lightheaded.

Scott Benner 57:23
What happens when you test in a situation like that?

Unknown Speaker 57:27
Um,

Caitlin 57:28
I'll test I'll see where I'm at. If it's different, we'll calibrate it or unless if it says it's different, but then it the arrows it show it's starting to come back up. And we won't do anything about it. But if it says it's still at 45 going down for like, for like the past like 15 minutes, and it's still going like that we'll calibrate it.

Scott Benner 57:50
Here. Yeah. There's all kinds of different opinions about how when to calibrate or not calibrate. CGM people are very passionate about those conversations. But I hear what you're saying. I think when there's a discrepancy, or when you don't feel the way it says it's always a good idea to test right away. It's the best thing. It really is. Are you thinking about? Or do you even know anything about like, we use the Omni pod. So do you know anything about the Omni pod horizon? The idea of like, one day, there'll be like a little computer program. That'll that'll tell your palm how much insulin to give you and have you and your mom ever spoken about that?

Caitlin 58:31
I think my mom has talked about it, but I don't really know. It's not something you're playing right now. But I do know she I think she was talking about word like Dexcom and Omnipod. We're going to we're coming together or like conjoining some at some point.

Unknown Speaker 58:49
No, no. Oh, that's it.

Unknown Speaker 58:51
Yeah. My mom says that's horizon. So yeah,

Scott Benner 58:53
there's something you guys are talking about. That's cool. That'll be like a year from now when you're like gonna be 12. You know, in on May 30 2021. That I remember your birthday. Yeah, you have to be impressed. You don't know that about me. She'd be impressed. But then an hour later, I know your your birthday is may 30 is a huge deal for me. Just so you know. I'm incredibly not good at remembering. Almost everything.

Unknown Speaker 59:22
Same here.

Scott Benner 59:23
It's weird. It's weird that I'm the one doing this podcast. It's even weird to me. Like when I start talking about diabetes, and people are like, Oh, that's great. I'm like, Huh, how did that end up being? such a weird thing? I should probably be. I don't know what I should be doing for a living. I don't think it's though. I didn't think it was gonna be this though. What do you want to do? I mean, the bakery thing is a real thing. I want to do that.

Caitlin 59:46
Yeah, that's something I'm planning on doing. Because my family Smith, because some of my family does baking like my great grandma. She bakes a lot. And sometimes for like parties. I'll do something with my mom.

Scott Benner 1:00:01
I went to baking school for three years when I was in high school. I couldn't make bread like you know, somebody makes a loaf of bread. I can make 150 loaves of bread at a time. What I know how to bake for like an industrial sized bakery. That's what I learned to do. Because I didn't want to go to high school. So I went to baking school, and it split my time. That's probably probably not something they do anymore. And it wasn't a good idea. I should have went to high school just so you know, these mad baking skills that I don't get to use very often, although I'm going to use them today because Arden wants cookies. That was that was what was told to me last night that I needed to make chocolate chip cookies today.

Unknown Speaker 1:00:42
Cookies.

Scott Benner 1:00:44
Do you like cookies, though? A little bit. You'd like them when they're thin and harder or puffier and softer.

Caitlin 1:00:52
Like a mix of them, because sometimes they'll be hard or softer. You really don't. cuz sometimes you can never determine if it's like that because sometimes they'll be puffy, but hard or thin but soft. They can change people are giving you puffy but hard or thin but soft cookies. Those

Scott Benner 1:01:10
people do not know what they're doing and baking cookies. Okay. You take a bite, you make a little face, you put it down. Very, very judgmentally. Okay, then you just push it into the trash and let them know with your actions. You have crappy cookie, and no one wants to eat this. It's so easy to do the right way,

Caitlin 1:01:32
then, I mean, the only reason why I like both of them. I mean, it's just a chocolate chip cookie. I mean, if you give me a cookie, and it's light, and it's puffy, but hard. I'll still eat it. I mean, it's a cookie.

Scott Benner 1:01:42
Caitlin's like any chocolate chip cookies a good cookie, Scott,

Unknown Speaker 1:01:45
any cookies. Good.

Scott Benner 1:01:46
All right. Listen, I was thinking it might be interesting for a second. Could I talk to your mom for the last couple of minutes? Okay, yeah. Hey, wait, Caitlin. Wait. Yeah, I really enjoyed talking to you. I want to tell you by Did you have fun doing this?

Unknown Speaker 1:02:00
Yes.

Scott Benner 1:02:01
Do you have any idea what we talked about? Anything like if I said to you right now, what's the little blurb gonna say? In your episode? Do you have any idea what it's gonna say? No, I don't either. I don't think that we talked about whatever. We talked about whatever. Yep. All right. Thank you so much for doing this. I really appreciate it. I hope. I hope you don't have the Coronavirus. I don't. Right. Good girl. Let me talk to your mom. Okay.

Hello. Okay. We're still recording. Can you put the headphones on for a second? Yes.

Unknown Speaker 1:02:40
All right. Oh, goodness.

Jessica 1:02:44
Got cords wrapped around everything. Can you hear me?

Scott Benner 1:02:48
What did you do to that girl? Why is she like 35 years old?

Unknown Speaker 1:02:51
I don't know.

Scott Benner 1:02:54
Either you or your husband like that?

Unknown Speaker 1:02:56
Ah, no.

Scott Benner 1:02:59
You're not like she she's the most responsible person in the house? Sometimes? Yeah, definitely. I'm just like, I'm talking to her. And at one point, it occurred to me I'm like, gosh, she's 11. Yeah, I really is, when you sent me a note, I want you to know that your note has mimicked a number of them that I've gotten over the years from people are like you don't understand. My kid is so good at talking. And so mature, and some of them are but some of them aren't. And yours really, really really is. Like, she's just like, right on. I'm like, Hey, is there anything we shouldn't have talked about today? Like, what do you think anything? She's like, I probably shouldn't have said that. We went to Disney. I was like, Wow, she even knows. Oh, my God. I was like, I just thought I thought Wow, she's even aware of that. Like, didn't even like she has like she was able to like, think back over the hour and go, Oh, you know what, I wish I wouldn't have said this. Right. But I said that. She was like funny without being mean about her brother. She was real. Were you listening the whole time?

Jessica 1:04:05
A little off and on. I had to make a couple of phone calls to insurance companies and make sure you know, we get supplies, and all that good stuff. So in between calls, I was kind of like, poking my head at the door. She did

Scott Benner 1:04:16
a terrific job. She was really really good. It was excellent. I'm glad Yeah, no kidding. She does want you to be involved with her diabetes care for her whole life.

Jessica 1:04:25
her entire life. So I must live for ever. 100,000

Scott Benner 1:04:29
more years. She has to go Yeah. And if she does get married, although relationships are not something she's thinking about. If she does get married, the boy is going to have to understand her diabetes. She said she's gonna have to teach it to him.

Unknown Speaker 1:04:46
Cuz she won't do it.

Scott Benner 1:04:48
You're like, yes. You think she's looking for for a different caretaker?

Unknown Speaker 1:04:52
Yes, that's that's probably what it is.

Scott Benner 1:04:55
She said she enjoyed bossing her brother around. She likes being right sometimes. She said, I told her my wife loves being right. She there's nothing more than my life. My wife enjoys them to tell me what to do at work, right? She just she's in her element in those moments. Yeah, it was really she was really delightful. Yeah, it was really nice. I don't know, when this will be out. But I think because we talked about Corona, I'm probably gonna have to push it up and have like, two years from now, like, you know what I mean?

Jessica 1:05:32
Wait, it's not gonna make sense to a lot of people. Or maybe it may,

Scott Benner 1:05:35
or the bigger problem would be six months from now, you know, everyone's dead. And we're joking around about curl, right?

Jessica 1:05:43
Not anymore. I know. We're like, I'm like, Oh, it's probably not funny. It was funny. In the moment when we were there. You know, Friday, we get up there Friday, mid afternoon. And we're like, What's good? Why is I mean, Disney Springs was empty. Because I believe everybody was at the parks. But there was no word of closures of anything. As far as we knew, I mean, we were on vacation time. So I wasn't watching the news, I wasn't paying attention to anything I was, you know, it's interesting, getting a family of four packed up to leave for seven days. So, and my friend was the same way. She had her family of five, she was packing up, you know, to prepare and everything like that. And we get up there, we're enjoying our time, you know, and all of a sudden, you know, we're, I'm looking at my phone, I was like, Oh, this is a little more real than what I thought. And I work I you know, working 50 plus hours a week, you know, outside of the home, so I don't have the TV on hardly ever. So it was I was like, Oh, my first down minute. I'm like, Oh, this may be more real than I anticipated.

Scott Benner 1:06:52
We it's funny. I was talking about this with Kelly a little bit too, that. Just the idea of it. It's just that if we wanted everybody to know right away, the federal government would have had to step up and be like, that's it. Everybody get into your houses turn on your television will explain to you why. When you let it trickle out like this, there are people who are more connected to the news, less connected to the news. Some people who are working so much are just like you got busy. And so like, Is it fair to say that a week and a half or two weeks later, if you knew what you knew now, do you think you would have went to Disney?

Jessica 1:07:25
No, no, not at all. Not at all. I mean, why we brought plenty of hand sanitizer because, you know, there was a run on hand sanitizer. We couldn't keep it on the shelves in the store. I just everyday somebody would come and ask your hand sanitizer. I was like, Oh, we haven't gotten any in in two weeks. You know, I'm not sure exactly. You know, you soap and water. And don't touch things. You know,

Scott Benner 1:07:45
that that's not even enough to make you think like, I wonder why people are asking now have they come in and been like, do you have any zombie guns? Why is everyone asking for a zombie gun?

Jessica 1:07:56
I may have turned on the news that

Scott Benner 1:07:59
hold on. That's the third guy they asked about zombie booby trap. Let me just find out what's going on here now. Right? Yeah. Now it's it really is interesting how it gets how slow rollout? Everyone, it's because you see people on Facebook. You know, there's different levels of virtue signaling going on around around Corona around life in general. But that idea of like people like to say smart things to make sure you know, that they know like that, you know, because who are you really telling on Facebook, the five people who follow what you're saying? What are you exactly fixing the world by making sure that Patti and Karen know about the the Coronavirus, like they haven't figured you know, but but so everybody's doing that thing. And I always think like, you know, there are people who don't know, they just aren't paying attention. If you need any more, you know, backing for that, right? Let's see, let's just do this, like how many people voted in the 2016? election? You'll see why I'm doing this in a second. 2016 United States presidential election simple. How many people are well listen, it's easy to do this way. Right? It looks like one person got 65 million votes. One person got like 62 million votes. Okay. What's that, like? 130 140 million people. Right. Right. Now, let's Google this. How many people live in the United States. So there are 327 million people in the United States given that they're probably not all a voting age. It does seem kind of suspect that only about 140 of the 140 of the 327 voted like so. There's just some people just aren't even like concerned with the presidential election for example, or now. You know, I don't listen to the weather. Right. I know people who constantly know The weather and I am forever walking outside being surprised by the weather. I opened the door on my golf training.

Jessica 1:10:07
Where we are there is no point in listening to the weather. It's it's gonna rain. It's not gonna rain. It's you know, Florida.

Scott Benner 1:10:13
I'm just my point is there's things that people, you know, tend to care about things that people tend not to care about. Everybody's different I because you didn't, as she was telling me that you guys were there. I did not imagine that you were the kind of people who were like, Huh, there's a really good reason for us not to do this. But Screw it. We're going anyway. Like, I know you well enough online to think that that's not who you are, right? Oh, no, no, not at all. It's it's just it's interesting to watch it all go. So let me ask you before I let you go on, do you have more?

Unknown Speaker 1:10:43
Oh, yeah. Yeah. All day.

Scott Benner 1:10:46
You're like, I have nothing but time Scott later, we're gonna play poker for potato chips.

Jessica 1:10:51
Exactly. I you know, I had her do a lesson plan, you know, for the week that she's gonna be with my mother in law. You know, her and my son are going to be with the mother in law for the rest of the week to do school lessons and you know, a sense of normalcy as you as you call it, during less. So hopefully they'll follow through on it.

Scott Benner 1:11:10
Just you know, she might not be willing to go because I told her she still got four more days before she knows if he has Corona or not.

Jessica 1:11:16
Right? she does. She does.

Scott Benner 1:11:18
She might be like, no one's coming in this house. And I'm not leaving Jessie. But how does she do with her type one with her diabetes stuff? Are you bring me in for an 11 year old? Are you pretty happy with how she handles it?

Jessica 1:11:32
Oh, very, very amazingly. Well, I know she she does. You know, as an 11 year old as a child, she does tend to, you know, fight on some things. But she would fight me on something else. If it was not diabetes. So and those are the times when I just kind of okay, I take over. And I do I do most of the care for her. But I rely heavily on her to do it. At school. Yeah. And we don't do that communication where you do with Arden at lunchtime, she just doesn't have that time she she is almost embarrassed to pull her phone out and be like, Hey, Mom, it's lunchtime. What do I need to dose. So we've come up with writing the carbs down on it used to be a piece of paper, but she we found that she wasn't eating everything. So we just write it on the packages, and she adds it up what she's going to eat. And if she decides she's gonna eat more, she'll dose a little more so that that tends to work for us. So I like that a lot.

Scott Benner 1:12:31
I obviously, just the more

Jessica 1:12:33
you don't follow cards,

Scott Benner 1:12:35
the more fluid just throw that insulin in and go ahead and eat. Let's see what happens.

Jessica 1:12:39
Yeah, we do that when it's not like pre packaged or anything. We'll just be like, Oh, that looks like

Scott Benner 1:12:45
sound like you're doing terrific. You really do. I appreciate. She's like she's like, there's episodes my mom tells me not to listen to and I was like the ones about the weed in the drinking. She goes yeah. I said, Did you listen to her not listen to them. And she goes, I didn't. She's like, but I did read the descriptions. I was like I said, well, there's one coming out about sex pretty soon. Please don't listen to that one. She sucked. Okay. Yeah, she was really good. Like, she just was terrific. I'm assuming you're very proud of her because she was. Yeah, she was excellent. Cameron apparently is a mindless pain in her ass that only wants to talk about Star Wars. Just so you know. When I told her one day, she'll be married to a man who's a mindless pain that only wants to talk about Star Wars. Is don't expect too much growth out of boys. Just see it now. Yeah, we're gonna, we're gonna pretty much be the same, just taller. So yeah, well, I really appreciate you guys doing this. And I just want to say thank you to you as well.

Jessica 1:13:43
Thank you for allowing us to come on. I mean, I was not expecting I told her. I was like, Caitlin, I'll send this email out. But do not expect a response anytime soon. Don't expect you know him to say yeah, I'll do it or anything like that. So when I got the reply, I was like, Oh, okay. She held up her end. And I will tell

Scott Benner 1:14:01
you this, like, in all honesty, episodes with children don't do as well. There are people who you know, will say, like, give us skip it because they're just like, I don't wanna hear a kid talk for an hour. But I think those people are making a mistake number one, but number two, for every person who doesn't want to hear if there's somebody who wants to hear it. And so there's that's her story. Still someone's story, right? And she's still a person with type one. And I think people need to hear it. I mean, she told me something she learned from Tommy's episode. Yep. Right. And

Jessica 1:14:33
she wanted to hit she wants to hear more from kids. And that's why she was like, I want to go on mom. If Tommy can do it, I I can do it.

Scott Benner 1:14:40
Well, I'm glad and I hope a bunch of kids hear her and then they're motivated to Pre-Bolus or pay a little closer attention. You know, whatever it ends up being, just to know that there's another person out there like them who's, you know, at Disney and doesn't want to Pre-Bolus because their friends are you know, and she's told me she's like, sometimes my friends are eating and I can't eat and I'm just doesn't like it. Yeah. So

Jessica 1:15:03
we try to catch it beforehand. But you know, when you're in the moment, it's like oh, no.

Scott Benner 1:15:07
easy to forget.

Jessica 1:15:08
Yes, it is. That's when we go a little heavier on the insulin.

Scott Benner 1:15:12
Sounds like the wind. The croissant went very well this morning, I thought

Jessica 1:15:15
Yes, it did. I'm amazed at myself. I'm still trying to tackle that croissant.

Scott Benner 1:15:22
And I got it this time. We're still Arden had cereal this morning with what I'm gonna call not quite enough. Pre-Bolus but she's at 150 so she's doing okay. You know, it's like a giant I don't know. And she didn't measure it. I don't know how much he ate. I don't even know what kind of cereal it was to be honest. I was already talking to Caitlyn.

Jessica 1:15:39
Yeah, so probably a bunch.

Scott Benner 1:15:41
Yeah, just hit her with a big sledgehammer full of insulin and let her eat the cereal.

Jessica 1:15:45
There you go. I that's where I've come down to I was like, you know it, we'll figure it out. It will. Sometimes it's gonna be a little more sometimes it's gonna be a little less she she does good with measuring things out. I'm like, you don't have to do that. She's like, No, I want to I said okay, and she measured off the cereal and it's like, that's a snack. Like no it for a little more on there. But yeah, she she does very well with you know, dosing and things like that.

Scott Benner 1:16:14
It really sounds like it it really does. It's very cool. Well, congratulations, you have a lovely family. As long as you guys all don't

Unknown Speaker 1:16:21
die of Coronavirus Coronavirus,

Scott Benner 1:16:22
I think you're gonna have a lovely life.

Jessica 1:16:27
You got to be light hearted with us. You can't take everything too seriously. You don't have to live your life normally. Listen, I

Scott Benner 1:16:33
have to tell you, I think joking aside, I think this is an incredibly serious thing. But it is not gonna stop me from trying to stay light hearted about it or because we're trapped in our house. Like what Brian would get what point is not going to be all like Lord of the Flies in here. So, you know, people are being cool. Right now we're found, you know, we've had to tell my son a couple of times, because he'll he goes fishing for like, Yo, I was gonna go play basketball or something like that, like that. We're not or, you know, I heard the other day, my friend wants to come over and help me put my clothes away from college. And I went, yeah, she's not coming. So you know. I guess he's doesn't realize he's 20. So it's perfect. Right? Because we haven't gotten to that conference. Or maybe he just likes a free place to live and doesn't want to rock the boat. I don't know. Exactly. But he hasn't like pushed back. Because I think he knows it's serious, too. You know?

Jessica 1:17:20
Yeah. So now let's just follow the rules for a couple couple more weeks and

Scott Benner 1:17:24
hopefully help some people not get sick. Exactly. Exactly. Wish you a ton of luck. Oh, thank you. Yep. And I will talk to you soon.

Unknown Speaker 1:17:32
Yep. Thank you. Have a good day. You too. Bye. Bye.

Scott Benner 1:17:38
A huge thank you to one of today's sponsors, GE Vogue glucagon, find out more about chivo hypo pan at G Vogue glucagon.com Ford slash juice box. you spell that GVOKEGL Uc ag o n.com. forward slash juice box. Since it got thrown into the episode, checkout touched by type one.org. And all the other sponsors there's links right there in your show notes and links at Juicebox podcast.com. Wasn't Caitlin delightful. I mean that from the bottom of my heart. I enjoyed our conversation together so much and I hope you did too. I'll be back next week with much more of the Juicebox Podcast. See you soon.