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Scott Benner 0:00
Hello friends, welcome to episode 1121 of the Juicebox Podcast

today she'll be speaking with tasty she has type one diabetes diagnosed in 2021. She was misdiagnosed with type two diabetes before that. Since then she switched doctors learned to push back and is taking control. Please don't forget that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. When you place your first order for ag one with my link, you'll get five free travel packs and a free year supply of vitamin D. Drink ag one.com/juice box don't forget to save 40% off of your entire order at cozy earth.com All you have to do is use the offer code juice box at checkout that's juice box at checkout to save 40% at cozy earth.com If you're looking for community around type one diabetes, check out the Juicebox Podcast private Facebook group Juicebox Podcast type one diabetes. If you know someone who would make a great guest on the cold win series, please send them my way you can email me through juicebox podcast.com.

US med is sponsoring this episode of The Juicebox Podcast and we've been getting our diabetes supplies from us med for years. You can as well. Us med.com/juice box or call 888721514 Use the link or the number get your free benefits check it get started today with us med this show is sponsored today by the glucagon that my daughter carries. G voc hypo Penn. Find out more at G voc glucagon.com. Forward slash juicebox.

Tacee 2:08
Hi, my name is tasty. I obviously have type one diabetes and I live in Texas, Texas.

Unknown Speaker 2:15
Yes. Is it hot?

Tacee 2:18
It's very hot right now. It is 86 degrees. And it's 938 in the morning.

Scott Benner 2:23
Oh yeah, that is

Tacee 2:25
that's not supposed to hit 104 today.

Scott Benner 2:27
Oh my goodness. Do you? I do live there on purpose. Or did someone abandon you there or something like that?

Tacee 2:35
No, I've actually lived in Texas, my entire life. And I really love living in Texas. I much prefer the heat to the cold. Yeah,

Scott Benner 2:43
well, I do agree with that. The heat to the cold thing makes a lot of sense to me. How old were you when you were diagnosed?

Tacee 2:50
Um, I was I'll let you do the math because you're good at it. I was diagnosed in 2021. Okay, and I will be 37th of October. Well,

Scott Benner 3:01
this is not hard at all. It's it's two years. And you were about like 3435 years old, depending on when your birthday was? Oh my god, I can subtract two from things all day long. Tasty. Don't even test me. Okay, watch this. 98 minus 296. It's crazy.

Tacee 3:20
And the relationship, my husband is the math person and I am the words person,

Scott Benner 3:25
I can do it with larger numbers. 1,800,057 minus two, 1 million blah, blah, blah. You know what I mean? You just take two, it's very simple. I would have done it for you just them. But I forgot the number that I made up. So. All right, what makes you want to come on the podcast?

Tacee 3:42
Um, so last year, you were looking for people that were on Omnipod. Five, I had just been on Omnipod. Five, actually for like a couple of weeks when you posted something. And so now I've been on Omnipod. Five for a while now. And I'm actually not even using automation mode anymore. I'm running it in manual mode, because it wasn't that great. So

Scott Benner 4:12
you were having trouble. This isn't a good, good. Let's dig through this. I like this. Okay, so first of all, let's find out a couple of things. You've had diabetes for a couple of years. You started out with what kind of management

Tacee 4:24
when I very first started I was MDI so long last seen at night, and then a shot of fast acting for meals. Okay.

Scott Benner 4:34
So you were doing Do you know, do you remember what your Basal insulin was back then?

Tacee 4:43
Yes, because it has significantly changed. Um, when I first started, my Basal was about 20 units, okay. And my carb ratio was like one to five, one to seven or so. And it was a lot of trial and error. figuring things out, I think my situation was slightly different than most other people because I was mistakenly diagnosed as type two prior to getting the official type one diagnosis. And I was so proud of myself because I was doing all of the things. I went full blown, like keto, low carb. Why don't they really keto, because it wasn't doing super high fat, it was mainly just really extremely low carb. And I suddenly started losing all this weight. And I was so proud of myself. But my blood sugar's were still in the 200, even after eating lettuce, and the doctor I was seeing at the time was like, Oh, you're not trying hard enough. That's pretty normal. These numbers really aren't that high. And I'm like, I'm really uncomfortable with all of this. Can you please send me to an endocrinologist? So right away, they were like, Yeah, you have type one, and your agency is 10.5. And we need to work on that. What?

Scott Benner 5:57
What made you so sure that you should go to an endocrinologist right away? Like, do you know something about diabetes? Before you got it?

Tacee 6:05
So I did have gestational diabetes with both of my pregnancies. And so they were so strict with that about like, any number really higher than which I think is funny now, because they use like one ad, they wanted everything to be under one ad. And now I'm like, Oh, my gosh, one ad so high. They wanted all the numbers to be under one ad. So I was consistently having these numbers in the two hundreds 250s. And I knew I wasn't eating anything with carbs in it. It was kind of weirding me out. And I think everything just kind of aligned because at the same time that I was struggling, my numbers were so high. My mom was like, Oh, by the way, your uncle was just diagnosed with this thing called lotta like type 1.5. I don't really know anything about it. Do you think that that's what you have. And so that was really the pushing factor to be like, my numbers are really high. This doctor is telling me that I'm not trying hard enough and that I'm cheating when I know for a fact that I'm not right. And so that was kind of the pushing factor. I'd

Scott Benner 7:08
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Tacee 10:05
So I did MDI for about nine, nine months.

Scott Benner 10:12
Okay? And I'm sorry, the brand of Basal insulin. Do you remember it?

Tacee 10:16
basaglar? Okay, that's a glare on Novolog. All right,

Scott Benner 10:22
cool. So, when you decide to move to a pump, do you go right to an algorithm? Or do you go to a no,

Tacee 10:30
I went to the dash. Okay, so no algorithm. Yeah, I was really fed up with doing shots. And I was having a lot of trouble getting everything to be consistent. And I knew it was because I needed to tweak my basil, which is I was having a difficult time with on MBI that, and so I knew if I got on a pump, I could make more immediate changes. Yeah,

Scott Benner 10:54
no, I understand and have have more control over everything. The finer controls. I have a question though. Yeah. Before switching to the pump. What was your day one, see, what was your variability? Like? What What are your outcomes like day to day on MDI?

Tacee 11:10
So my aliens see when I was doing MDI was 6.3. By the end, I don't remember the specifics. But the the, like the standard deviation? Yeah. Was really large, was really large.

Scott Benner 11:28
You bounce you were bouncing up and down and having a lot of lows. Yeah,

Tacee 11:32
I was having a lot of lows. And so then, I was still learning and trying to figure out what the heck I was doing. And so I would overcorrect. So then I would go back high. And it was just like a ping pong and just really made me overall feel pretty crappy. Yeah,

Scott Benner 11:47
you were bouncing around. Okay. So you had probably an artificially lower a one see your standard. When you say a big standard deviation? Do you mind telling people so they get a feeling for it? Was it in the 60s?

Tacee 12:01
I think it was closer to 75, honestly. All right.

Scott Benner 12:06
So is that because of the education you received? Were you not like, what do you think was happening back then?

Tacee 12:14
Yeah, so honestly, everything that I now know about diabetes, I have learned from Juicebox Podcast, and that the Facebook group, especially seeing what other people are posting, because I didn't know about like the standard deviation. And that, you know, that we're looking for it to be like a pretty smooth thing as opposed to the lake. We're looking for waves, not cliffs and valleys, which I was definitely getting. And also just about like actually, like not being scared to use insulin. That was something that they told me they're like, Oh, well, you can't eat. You can no longer eat bananas, you can no longer eat. Like you have to limit watermelon. And all these things. And I'm like, so you want me to replace real food with these artificial leaves, flavored our you know, sweetener things. And that just didn't sound very logical to me.

Scott Benner 13:07
Good. Good for you. And so you were chasing your blood sugar around? Is that fair to say? Yes. Yeah, it was going high. You were going I don't want to use too much insulin and then eventually thinking I got to do something crashing down low overcorrecting, because you're scared Bounce, bounce, bounce. Yeah.

Tacee 13:23
And then it got to the point where I just like, I'm just not going to eat because I don't want to do another shot that's going to be followed up by another shot.

Scott Benner 13:30
Yeah, no, no, because I'm all over the place. It's a pretty quick ride to that thought, like, you know, to start having the unreasonable thought of like foods, the problem, and, you know, obviously, using the insolence correctly would be would be very valuable. So okay, so you, Well, you seem inquisitive. So when, when you see this bouncing around, you finally get tired of it. I'm going to think not just tired of it, like, Oh, I'm sick of this, but like, exhausted by it, I'm guessing. And then how do you? How do you make the leap to think there's information somewhere, but I don't know where it is or how to get it. So

Tacee 14:06
I started doing research what I didn't know at the time. Earlier this year, I was diagnosed with ADHD, which explains a whole lot of things in my life that I didn't previously know. But one of those things that I call my ADHD superpower is hyper focusing. And so I just went on this type one hyperfocus rabbit trail and just started reading everything that I could, listening to a bunch of the podcast, reading transcripts for the podcast, because sometimes I get distracted. And listening is not super productive for me. But for some reason, I can read the transcript and be like, okay, yeah, I know what's going on.

Scott Benner 14:46
Casey, is that because my voice is intoxicating? How do you get lost in it? Exactly. I'm just kidding. So

Tacee 14:54
I get distracted by other things like so I'll be listening and then I'll be Like, Oh, look, I need to wipe up that mess that my kid left on the table. And then I start thinking about that, and then realize that I have not listened to the past three minutes. And I have no idea what is being said anymore. Gotcha.

Scott Benner 15:14
I understand. Okay, so you can I ask how you find the podcast? You find it through Facebook? Or does somebody recommend it?

Tacee 15:20
I found it through Facebook.

Scott Benner 15:22
I'll tell you what, Facebook is great for the podcast. It's, it's amazing how, how many people come into the private Facebook group? And say, there's a question. It's like, where did you hear about the podcast from? And the amount of people who say like, your doctor, or this group, or that group is lovely, but the ones that always stunned me is everywhere? I don't know, I hear about it everywhere. Like, Oh, good. You know, so the word gets around. So you get through Facebook, that seems reasonable. You get into my Facebook group that helps you find the podcast, you find a balance for your ADHD between listening and reading? Or do you go into the, like the management series? Because that's what you're interested in most when you get there, right is trying to figure out? Yeah, which one? Do you know? Do you know which ones you used? The

Tacee 16:08
basics are the ones that I started with?

Scott Benner 16:10
Well beginnings, beginnings. Yeah. Okay. By the way, I'm doing market research while I'm also interviewing you. Okay, so you get into those, they lead you what? Into a mindset that's different.

Tacee 16:23
Oh, absolutely. Because interestingly enough, I started. So as soon as I had an inkling that I might actually be type one instead of type two, like I was told, I went on Facebook, and I looked for every group about type one. And I just started like blindly joining. Shameless plug yours is honestly the best. I actually ended up leaving almost all the other. I'm one Texas pipeline group, I think is the only other group I'm in. Because yours was just the most helpful and the most realistic, and just the best community.

Scott Benner 17:00
Thank you. I'm glad. That's wonderful. I appreciate you saying that. And I'm glad you found that to be like that. Thank you.

Tacee 17:04
Because I like everything that I learned, I learned from watching what other people were posting from listening to the podcast. And I was so mad that I found out about it so late, because all of these things if I had known when I was pregnant, my pregnancies would have been so phenomenally different betas, because the information that I was provided was like, You have to eat this. You have to eat 60 carbs for dinner. You have to and you have to Bolus this much no matter how many carbs you're eating. And I'm like, Man, that's fake news. I wish I had known otherwise.

Scott Benner 17:41
So you were eating when you were pregnant? You were eating food you didn't want?

Tacee 17:45
Oh, absolutely. More so with my first pregnancy, because I was scared. Because it was my first one. It was you know, my very first pregnancy and then to be told, like, oh, well, you have this thing that could affect your kid. I did exactly everything that they said. And I felt horrible. Sorry. When they make you meet with the like the educator, and it was a group study. And so there was like five other women, all different stages of pregnancy, all with gestational diabetes. And they were talking about things to eat. And she was like suggesting these meals. And I was asking about quinoa. I really enjoy eating quinoa. And she had never heard that Decatur had never heard of quinoa and had to look it up. And she's like, Well, why don't you just have some some white rice instead. So

Scott Benner 18:39
I don't think those are the same thing.

Tacee 18:41
And I'm like, um, and that's when I knew that something was off. That, you know, you're you're telling me to eat white rice for my dinner, or instead of quinoa, when Keen was much more nutrient dense. And so the whole thing was just very bizarre to me. But again, I was scared. So I mostly did what they said. And every time I went to an appointment, they were like, did you have more carbs than you're supposed to? Because your numbers are high. And I'm like, No, I actually had less than or like, I don't know about that you probably just counted. It was just the whole thing was so dismissive

Scott Benner 19:19
and dismissive and being the the what it felt like the asylum was being run by the lunatics that kind of feeling. Yeah, yes. Yeah. Yeah, I tasty. I'm a nice person. So I'm not gonna say this very specifically. But I know a lot of people who have a lot of different jobs, and if you put me in charge of the world, most of them wouldn't do that. So don't be like No, that's not really for you. Your brain doesn't work that way. You shouldn't be doing this. You have no knowledge whatsoever. It's interesting how we ended up listening to people because of the job they have. And I don't get to. I don't get to know how they came about that job, you know, yeah. So, you know, you could be sitting in a room with a person who barely got through their education. And then whose mom knew a person at a place that got him a job doing a thing. And now you're sitting there pregnant, listen to them about what the, you don't know how it happens. And I don't I don't mean to be distrustful. Like I'm not saying that there are plenty of people who do an amazing job and medical places and everywhere in the world. But I mean, we, I don't know I said this to somebody the other day like you go to the tire shop, you expect people to like know about tires, and when they not when they don't like you should get in your car and drive away. Not not go. I hope this works out. Okay. So yeah, good for you. By the way. Is this always your personality? Or did you find the balls for this when you got diabetes?

Tacee 20:52
I think this has always been somewhat my personality, but getting diabetes really highlighting that I'm not going to do what somebody says just because you're, quote, a person of authority, if I don't agree with what you're saying, because with my second pregnancy, I did not do any of the things they told me to do, and had a much better pregnancy and a very healthy baby. Wish you could

Scott Benner 21:16
see me, I'm holding my hands over my head in celebration. I feel lovely. It's my birthday. Did you know that tasty, you get? Thank you, I'm older. And I just just hearing you talk like that, and knowing that you're a person who started where you did, and so quickly got to where you are like to be like, aggressive about caring for yourself. I feel like great for you. It's just I hope everybody listening is thinking I should do that too. I should take over and, and and take control of what's happening to me. I really just that I felt elated. While you were saying that I really I'm thrilled for you. Thank you. No, no 100%. So okay, so you're on I'm sorry, I'm jumping around. But your ADHD brain probably loves this. So who cares? She's like, finally someone talks in my flow. So you're on the dashpot now, not now. But back then. And you're you're bouncing around, you're starting to figure it out? Do you ever get into a spot where there's stability and you're not chasing? Your blood sugar's around?

Tacee 22:23
Yeah, so I get to a much better place on the dash. My biggest problem is having a few overnight lows. But everything is so much better. I am feeling so much better. Yeah. And feel like okay, like, Hey, I kind of have a handle on this and kind of know what I'm doing now. I'm eating the foods that I normally eat and enjoy like quinoa, and watermelon. And you know, and things are good. But then I started seeing ads for the Omnipod five. And I had heard about like algorithm and looping and stuff. I had actually started looking into doing a DIY loop. And then I got a little I don't want to say scared I got a little nervous. Because it sounds it's a lot like to get it set up and to get it built out. Sure. And then like if it doesn't work and what if I do something wrong? And what if it What if it malfunctions, so I was a little hesitant to do DIY looping. So then when I heard about Omnipod five I was like, Oh, this will be great. This will solve all my problem. I get the best of both worlds it's going to be like more controlled and helped me not go low and an all these things. So got switched to the Omnipod five and my numbers all went up.

Scott Benner 23:49
Okay, what do you mean by that? So your agency went up your standard deviation like what moved the

Tacee 23:58
standard deviation wasn't so bad but my aylen definitely went up and I was running way higher than I would like to even doing like and I was correcting all the time. How

Scott Benner 24:10
long how long did you did you Oh, I guess my first question should be Did you sounds like you might have but did you listen to the overview on the pod episode about how to set up your on the pod five did

Tacee 24:24
okay. And I even like started over because like okay, well maybe something you know, maybe I didn't do it right the first time or something was off and like I wiped it and started over and it's still was not great. So

Scott Benner 24:39
where are you seeing? What like could it I'm trying to figure out how to pick through this. spikes at meals. Was that a thing? Like

Tacee 24:50
that meals bike like where I had my my nighttime stuff pretty figured out before getting on the like with the exception of a couple of random nighttime lows for For the most part, I was pretty stable overnight, especially if I like, did the same things and like a at a specific time and then went to bed, etc. Now all of a sudden, I was running really high at night. Can you put a number on that for me? Like 181 90? Okay. And this is at like 3am.

Scott Benner 25:21
Gotcha. And before you were more, you were lower than that. Where were you before that? Before

Tacee 25:29
I was averaging up between 90 and one ton, okay.

Scott Benner 25:34
And your Basal insulin, when you were 90 or 110? In manual mode was what? Overnight just about?

Tacee 25:43
I'm trying to remember because it honestly has changed. What

Scott Benner 25:45
is it now? Because you're running on the pod five and manual. So what's your Basal now? So

Tacee 25:50
my Basal rate now for like, just like my basil for the day, I'm at 5.05 units per day now. Really? Five? Yeah,

Scott Benner 26:01
it's a basil day. And how much do you can I ask you how much you I'm sorry? No,

Tacee 26:08
not at all. I went 155.

Scott Benner 26:12
So if five years ago, interesting, are you? What's your insulin to carb ratio?

Tacee 26:19
Oh, one to 10? No, I think I'm I went to 12 right now.

Scott Benner 26:23
Are you eating very low carb?

Tacee 26:25
Depends on how you look at it. Um, for actual, like, low carbon? No, but for the rest of the world, probably. But, like, last night, I had a little Debbie's withdrawal, because that is my advice. Um, you know, we all have them. So yeah, I do eat regular thing. It's,

Scott Benner 26:45
it's possible this episode will be called on a swiss roll. Like, so. Okay, because it wouldn't let

Tacee 26:55
me add some color though. Because I'm being to have. So when, when we first book this episode, I was just type one on a Omnipod. Five. So and I think we booked this like a year ago, I have been anxiously waiting, by the way, counting on the date.

Scott Benner 27:15
I apologize. But thank you.

Tacee 27:17
And so things have changed. So obviously, I'm still type one. In November, my endo starting me on ozempic.

Scott Benner 27:27
Okay, that's a good, that's a good bit of information. Okay.

Tacee 27:32
I can I can see the wheels turning on, you're like, wait a minute.

Scott Benner 27:36
Does that make sense? You're not using enough like, there's not enough insulin here for your body weight. I'm like trying to figure out where it's happening. I thought maybe you were like, over crazy barley. Like, I thought you were gonna say something like my insulin to carb ratio. Scott is 123. And and I would have been like, oh, we should maybe get some more of it into your basil and like, maybe you'll be a little better. But you're on ozempic. Okay. Oh, okay. Hold on a second. All right. How long have you been on this epic?

Tacee 28:02
I've been on ozempic. Then the September, September, September of 20. Jump

Scott Benner 28:09
December. I'm counting January, February, March, April. Oh, like 11 months? Okay, I probably could have a lot. Go ahead. 35 pounds. Wow, good for you. Congratulations. Yeah, we're going to talk about that. And then we're going to loop back round and see if we can figure out how that's impacting during Soma. So because you're the first person I've spoken to, who's, who's type one and using ozempic? Are you out of pocket? By the way for? Do you pay in cash?

Tacee 28:40
I am not. I have no idea how b&o got

Scott Benner 28:44
don't want me to cover me or something, I will create

Tacee 28:48
my I'd be interested. So I have it's like Anthem Blue Cross Blue Shield, but I'm on the High Deductible thing. And it as a type one, it is probably the best insurance I could ever have. I get it through my job. So I don't pay a premium. I just have to pay my deductible, which is $3,000. Which as a type one, I meet my deductible in January. Oh,

Scott Benner 29:10
are you kidding? Like usually January 15. I'm like God, we're clear. It's good. Takes like one water or pods or decks columns or something like that. And I'm like, oh, it's all good. Now I've given away all my money. Yeah, yeah. But okay, so I have to go back to the beginning. I feel like this is a like a Quentin Tarantino movie. And now people are alive that were already dead. But we're live previously. I feel like we're going backwards. Who asks about ozempic You are a doctor.

Tacee 29:38
So the doctor had been talking to me about my weight that my endo and I'm like, Look, these are all the things that I'm doing. I am trying all of the things the only time in my adult life that I have been able to lose a significant amount of weight right before I was diagnosed as type one and that is looking back that weight loss Probably had nothing to do with me. Yeah. Probably DK Yeah. Going into DK. And so I was just like, look, this is what I'm eating, this is what I'm doing. I am not losing weight. I also have Hashimotos. I'm doing all these things like, what else should I be doing? Are there supplements I need to be taking, like, what do I need to be doing? You know, it's like, and she's like, Well, do you want to try some Olympic? I don't know if we could get it approved or not. But we could try it. And I'm like, sure, at this point, I will do anything because everything that I'm trying is not

Scott Benner 30:33
working. Okay. Hey, real quick. What's your TSH?

Tacee 30:35
My tip currently is that the one thing I didn't write down? I made like all these notes. I have this whole word document of all these notes. By

Scott Benner 30:47
the way, I appreciate everybody who's prepared for the podcast. Can you guess?

Tacee 30:51
Hang on one second. I'm almost to my. My tsp. Yeah, my TF H. M. So right now it's 3.46. But those lab results are from May, and January, through about March, April, were very weird months. For my family. My mom in February, my mom got bacterial meningitis. Oh my gosh. And she's fine. Okay, amazing. She's a walking talking miracle. Um, but she was in the hospital for a really long time. And when she first started in the hospital, she was she lives about 150 miles, two and a half hour drive for me. So she was in the hospital in another town. So I was driving back and forth while she was in the ICU. And then my siblings and I got her transferred to hear to San Antonio, to get her into a better facility. And that made all the difference. She has, like, hardly any deficits. It is yeah, it was one of the most probably the like, so I'm an adult. I've had two children. And watching my mom go through that was probably the hardest thing I've ever done in my entire life. But she, she's good.

Scott Benner 32:10
Cool, but why? What does that got to do with your 3.46? TSH?

Tacee 32:14
I was not taking my meds. I was not eating. I was not sleeping. Daisy, Daisy, Daisy, just

Scott Benner 32:19
a little pill once a day. I feel like I'm talking too hard. Now. Just put it in your mouth when you wake up. Yeah, I know. I know. It works. But so you think the 3.46 is because you weren't taking your meds then you got a blood test? Yeah. Okay. Because that's too high. You know? Yeah. Yeah. Okay. Yeah. All right. I was gonna say, Please tell your Endo, you'd like to manage your TSH under two. But, you know, you want to be I mean, you want to be as low as you can be without being hyper. And, you know, one point something, you know, in that range is amazing. I think sometimes people think it's low, because it's under the bottom of the range on their blood test. Do you know what I mean? Like the Yeah, so Okay, so you know that you're taking it again, please.

Tacee 33:08
I am. So this is what I don't understand. And maybe this is on my brain. Because with type one, I have never met. Even when I was doing like me, I never missed a shot. I never anything I was so like, but with the thyroid pills, it's like, oh, I have to take them within I feel so good when I'm taking them consistently and my TSH is lower. And then I go, I go through these cycles, I'm really working on it. I am taking them regularly now. But I'll go through these cycles where I'll forget. And I won't pick them at all for a really long time. And then they will feel like complete and utter trash. And I'm like, I don't know what's wrong with me. I'm so tired. I'm so and then I'm like, oh, I need to take my pills.

Scott Benner 33:48
Yeah, my thyroid doesn't work. So I've seen people do it. I mean, doctor tells Arden, take it in the morning. So Arden used to be this person who was like, Look, I can't remember to take it in the morning. So I'll take it before I go to bed. And it and what we thought at the time was at least she's actually consistently taking it. So we let that happen. And then as she's gotten older and visited the doctor by herself, you know a little more or been, you know, a little older when she's in the appointments, the doctors like I really wish she would take it in the morning. And she's like, Okay, I will and she switched. So now she gets up in the morning. It's like by her bedside, she wakes up takes it with water. She's done. So I think it's about I think it's planning Pacey is what I was trying to get at, like, I just think you have to have a plan. Like even I'll talk about this a little later. But anyway, get a plan get your take that pill every day please. Because that that impacts your your insulin, how your insulin works to not just how you feel so but anyway, so now we're I'm sorry, we are really jumping around but It doesn't feel like jumping around to me either. So I'm good. So the doctor offers you exempt that somehow your insurance company does the opposite of what insurance companies usually do. And just as like, sure we'll help you, and you and you ramp up on his epic, you've been using it for 11 months is a long time. Are you still losing weight? Or has it plateaued?

Tacee 35:20
It has plateaued, okay?

Scott Benner 35:22
Are you doing anything extra like exercising, which by the way would work better if you were taking your Synthroid, but go ahead. You took care of your mom, you took care of your monta. So you know, I'm gonna take care of you.

Tacee 35:37
Though, um, I would like to exercise I'm gonna be improving, yet. So. So when I started taking ozempic I was taking all my stuff regularly, I was exercising, and I felt so great. And then we all got COVID did not feel super great, super tired. And so then I was like, okay, like, we just need to get through the holidays now. And I'm gonna get everything back on track, got through the holidays, was just starting to get things back on track, then everything happened with my mom. I'm still trying to get back on track from that, because this is what life look like I understand.

Scott Benner 36:19
So yes. How has it impacted your hunger? So I think of it today. So you listen to this podcast, right, but I'm taking week Ovie Okay, I just took my last 1.7 weego V yesterday. So I have all my empty pens in front of me Hold on a second. So we go V is ozempic. It's the same exact drug. It's branded differently. They bring it we go V for weight loss is epic for type two. So it looks like I have had for eight. Well, I've taken 16. And I've been on the 16 weeks. That's what I was trying to figure out. I've lost 25 pounds. And it's legit, the greatest thing that's ever happened to me. Because I was not an overeater I was not a person who ate incredibly terribly. I wasn't really a food person. I just always would go through life. Like telling people, I don't know how to explain it, it feels like my body doesn't work, right? Like, yeah, that's how it always felt to me, I was like, I could eat. Like, you know, I can eat low carb, and I would lose water weight, like, you know, I mean, like, I could drop 10 pounds. And I've looked at myself and see that I'm not like as swollen or something like that. But then if I kept eating like that, it just didn't keep happening. You know, it just it never sort of went away. I'm hearing now from people that they're starting to look at research that says it's possible people could be like GLP deficient, almost almost like you are with your thyroid, right? Like maybe maybe you just aren't making enough thyroid hormone, or maybe you're not using it correctly. And maybe that could be the same for GLP for people. Because I don't know how to explain it. But I lost weight very quickly, like the doctors like hey, you're gonna use this, you're not going to lose any weight. In the beginning end of the first week, I was like, I've lost four pounds. Like, you know, and but it did hit me in my mind. So I think of hunger now in two different ways. I think of hunger in my head and hunger in my stomach. And like so a physical hunger and a mental hunger. I do not have either of those anymore. Do you have any of that impact? Yeah,

Tacee 38:20
um, one of the things and I think maybe this was more because of the type one because I was reading about the the GLP stuff with type one that that basically your your your because of your pancreas and all that whole situation, I'm probably not going to explain this very succinctly, but that your body doesn't know that it's cool. And so I would eat a lot. And I remember at one point, my husband and I talking about it, because when we were dating and in college, we could go in splits like a triple hamburger, and a large fry. And we would both walk away before and now I like prior to all this I could eat the triple hamburger myself and still be like I'm still a little snacky Yeah. And I knew that that wasn't right. For my body that the fact that I was eating like, but also I am not very good about eating like consistently like the whole like have breakfast, have lunch and dinner. I would be more like I'm not going to eat all day. And then now I'm so hungry. I need to eat like everything on a bridge.

Scott Benner 39:32
Yeah. Well, I still need a deficit, a caloric deficit to lose weight like the last I'm going to tag on to what you said earlier. So the last few weeks of my life have been strange to my mom passed away a few weeks ago. And so I've been on planes and you know, visiting people and people have been coming to my house and everything's different but when I get up in the morning, and I have a yogurt and an egg and you know maybe like a little rap or something And then have like, a little light lunch have a super dinner, I'm mindfully trying to keep my calories down. Because what I've learned about the the week over here, was that big the, you know, the semaglutide basically, is that it my brain doesn't think it's hungry. Like, I'll never think I'm hungry. My stomach never feels like rumbly or like, oh, like hollow. Like, I don't have that anymore, right. But if I want to eat, I can. And I can eat more than I thought I could. When I started on we go via, like at the beginning if you feel full right away, but then you start learning like, oh, it's fatty food that makes me feel like this, or, or dense stuff. Like there are ways to eat things that your body can process a little simpler. And so you could eat more. So you still have to stop yourself from overeating. You mean because Yeah. I mean, I've been alive today. I've been alive 52 years, almost exactly. Almost every hour. I know that people overeat, like, not just me, like we eat when we're not hungry, for reasons that, you know, I think we all know. But so I have to mindfully do that. Like, we had a bunch of people over we made food. And I just like, Well, I'm not going to eat a ton of this. You know, or like cookies, the refresh cookies in the house, because we're a bunch of people here. And I thought, Oh, I could keep eating these. Like I could, but I don't. I don't want to also has the flavor of food changed for you at all.

Tacee 41:28
It's not so much the flavor. But seeing that also like now I do get heartburn sometimes. Which that never happened before. Like I

Scott Benner 41:38
because your digestion is slower. Yeah. Do you get it? Yeah.

Tacee 41:42
And it's heartburn late the next, like, the middle of the night, early the next morning from something I had like late afternoon. Yeah,

Scott Benner 41:49
oh, I've definitely figured out that eating after six o'clock. I can't I just almost can't do it. Or it has to be like a very simple, like food that breaks down quickly. Because if I try to eat something heavier at night, even if I feel fine the whole time. As soon as I lay down, I guess I could get heartburn. So I figured out how to get a I was getting heartburn in the beginning of this. I figured out how not to do it cut like any fatty things out like that kind of stuff. Even like, protein at night. beef or chicken. Like that's it needs to be earlier in the day. Yeah. And but my biggest problem, your taste, you will really talk now. Did you get constipated at any point?

Tacee 42:30
Oh my gosh. Yes. So like everybody was saying that, that you would have like, diarrhea and nausea. And I didn't have any of those things. But I did get constipated. What also I was not drinking nearly enough water. Okay.

Scott Benner 42:44
Yeah. Because it's also it's a little hard to do that even. Like you have to mindfully drink and eat because your your body is not telling you in any way, shape or form. Hey, you're thirsty, or you're hungry. Yeah, I was using for the first 12 weeks, I was using magnesium oxide. And that was keeping everything moving the way I wanted it to. But in the last couple of weeks on this 1.7 I was like, it's not working. So I'm trying to drink more water. And I was taking I'm taking a little bit of fiber too, because because the minute the minute you get constipated on this, if I don't I don't know another way to say this. It feels like I can't believe I'm gonna say it's like this. But it feels like your sink is backed up and the food's coming out the top. Yeah, yeah, that's right. Right. Like, like you can feel fall in the middle of your chest in a way that you didn't like, you're like, is it stopping in my like esophagus. I don't think that's what's happening. But it feels like it just feels like it's getting too high, like the food inside of us get into and you're not eating very much, which is kind of fascinating. But anyway, I've lost 25 pounds in 16 weeks, I have a bone chip in my toe. I don't know why I'm bothering you with this. But if it's free floating, and sometimes it gets into the knuckle of my toe and feels like lightning is surging through my body. So I'm going to a doctor to have that removed in a couple of days. And then right back to my to my exercise routine. Because I did notice even if I just went for a walk for an hour, or I rode a bike, or I went outside and worked in my yard, I would wake up a pound lighter the next day. Yeah, yeah. Like I think the exercise is the next step of this. Definitely, yeah, for certain like I think for certain if I did consistent exercise, I would drop another 10 pounds in two weeks. It's but but my body is trying to hold on to this weight. And it doesn't make sense because I'm I'm eating nothing at this point. You know what I mean? Yeah, I just don't, some people are lucky. And some people's bodies don't work as well. So but when you go on as Empik 20 minutes later, like how I just sorry, 20 minutes later, you go On his epic, how much do your insulin needs go down right away and how much they go down as your body weight falls.

Tacee 45:07
So when I was epic, and within two weeks, I had to drop all my numbers in Tennessee, if I have any historical information, I should have looked up, I should look this up in your phone call or something. Yeah, I had to drop all my stuff. And then I actually at my last appointment, I asked, I was like, Is it possible, I'm using too little insulin? Because like this whole five units, five to six units of basil is like kinda weirds me out. I think it's the ozempic. Because it's like, I think everything just works. Better now like that, yeah, that I need so much less. And like where I would have like, where my carb ratio was like one to five. I'm like now one to 12, one to 10 to 10 to 12, depending on the time of the month, which that's another thing that's like, so bizarre is that since I started on ozempic, I use even less when it's that time of the month than I did before. Yeah, like I could almost like not like I don't like there's things that I'd normally would have to Bolus for that I can eat and not Bolus for.

Scott Benner 46:15
Okay, I think we're figuring out the reason why the the algorithms having trouble too, but so my brother has type two. And I was like four weeks into this, we go V and I'm on the phone to him. And I'm like, dude, go to the doctor, Tom ozempic. Make him give it to you. So now he's been at it for a couple of months now. He's starting to lose weight. 20 pounds, maybe he's getting up to. And But that aside, he is looking at me and going, Hey, look at this, I checked my blood sugar like an hour after I eat. It's 98 He's like, it's never, it's never like that. And he's like, he's like, I can't wait to go find out what my agency is after this. He's like, I'm starting to feel better. And his blood sugars are way way better. It's it really is terrific. Like, it's fascinating how well it works. And I mean, yeah, like, look, there's things about it, like we just talked about, like it feels like foods coming up out of my throat sometimes, or I can't poop. But you just have to learn to live with it. Like not live with it, like take it but like there's ways to do things that lessen those feelings. Like I'm not walking around feeling uncomfortable all the time. Like actually the opposite. I feel much better than that. I've lost weight. Yeah, no, absolutely. It's terrific. But I think this is going to keep happening. Like I think these are this injection, injectables, this the semaglutide. I think you're going to start seeing people with type one get it? Because I can't say who told me this because it would be like a patient confidentiality thing. But I know somebody who's helping someone who is cash paying for ozempic Like, like literally like $1,200 a month out of their pocket at but and their type one, their insulin needs have gone down 20% And they're losing weight on top of everything else. Like they are just getting healthier in every way that that's measurable in this situation. But it also makes sense. Are you at the highest dose on his epic?

Tacee 48:25
I'm actually not. So right now I'm at the one milligram did you go? Well, I'm gonna go up at the next my next appointment and August. You should be all the way up by now though. I think they offered at my last appointment for me to go up. But because of everything that happened at the beginning of the year, and I knew like, I wasn't like, I wasn't like I wasn't eating well. Like I just felt like that that set me back. So I'll just like I'll just stay here till my next appointment.

Scott Benner 48:53
Okay. All right. Okay, so I just meant time like she should have been higher. So you're still moving up? You don't even know where this is going. I'm using more than you're using. Yeah, okay. Oh, wow. You might still have do you. Would you be comfortable losing more weight? Oh,

Tacee 49:06
yeah. Yeah, I think I think I could easily lose like another 1015 pounds.

Scott Benner 49:13
And did you think that before you started, or did you think like, is the weight you've lost? Now like a year ago? Would you have said, Oh, this is a good weight for me? Or did you always know 10 or 15 more pounds was the way to go for you

Tacee 49:27
know, when when like a year ago, I was trying to set my goals very small. So like a year ago, I was like, Man, if I could just lose like 10 to 15 pounds, things would be better. But I didn't think it was realistic because I had always struggled so much. And like losing weight was such a struggle. Like I could do all the things I could work out twice a day I could I was training for a triathlon. And I was not losing in any way I was not. It's not just the whole like well, while you're building muscle So you're not actually like lose weight, like no, it's like nothing was happening. Nothing was changing in measurement. Why like, and so like a year ago, I was like, Oh man, if I could just lose 1015 pounds, that would be like, so amazing. And now I'm like, Oh, well, like, last 35. And yeah, like, if I could, you know, do another 10 to 15. That would be, that would be excellent

Scott Benner 50:20
to see, I must have been lying to myself for half of my life, where I was just like, I just need to lose 20 pounds. And then I lost 20 pounds. And I looked in the mirror and I went, Oh, well, that wasn't right. That number was not large enough in my mind. And like, I guess I lost 20. And I'm like, Well, this is better. Like, don't get me wrong. It's better in every way. My body is shrinking kind of everywhere. But I still this is not a good way for me. I should weigh less. Yeah, yeah, I was 208 this morning. And I was like, hmm, I should maybe be, my body should maybe weigh like 180 pounds. And I started this tasty at 233. And that was, it's hard to talk about, because I took pictures of myself before I started. And then I saw a photo of myself yesterday, and I look significantly better. And not good. Does that make sense? Yeah, yeah. It's a little upsetting, actually. But I'm not like, I'm not giving up. I'm thinking of this as like a long, long term situation. And I don't know what this drug does. I honestly don't even care if I grow a tail next month. I don't care. I'll be like, yeah, I gotta tell, but I lost 25 pounds. So whatever. But it's, it really is making a huge difference for me. It's

Tacee 51:43
well, and I think it's not just about like the actual weight loss. I think it's about how much better you feel.

Scott Benner 51:48
Yeah, like physically the like, yeah, that you don't realize, like, I'm not as tired. I don't wake up achy, My back doesn't hurt nearly the way it used to. It's getting better and better all the time. You know, my knee feels better. Like my joints feel better. I'm not carrying around 25 extra pounds on you, for you. 35 pounds. And by the way, how tall are you?

Tacee 52:10
I am five, four and a half. Yeah,

Scott Benner 52:13
you're a little person. And you know, 35 pounds is a lot. You know what I mean? Yeah. Yeah, that's very cool. I just think that you're gonna see more and more people on these. And they may be they're going to be lower doses, like, just enough to help with because you brought something up earlier that I glossed over. But that like insatiable hunger for type ones. That's real. And I and I've been watching people kind of talk about it in the medical space for a decade, and they never do anything about it. You know what I mean? Like, it's just like, yeah, that insatiable, I'm always hungry. It's got to be something to do with blood sugar, right? Like, Oh, absolutely, yeah. Yeah. It's just I don't know, it all makes sense to me. And by the way, don't run out right now and ask your doctor for ozempic? Because, like Tacey, should probably never let her insurance company hear this? Because I don't know how the hell you're getting it.

Tacee 53:07
I don't Yeah, I don't know how it was approved. Yeah, just, but it's really helping

Scott Benner 53:11
Oh, 100% head down, don't say anything, until they get a change. And it is, I genuinely think it's gonna get changed. So like, this could be an easy maintenance drug for type ones. Like just imagine a once weekly injectable that curbs your hunger slows your digestion, which helps your your blood sugar, and is and because of that less than your need for insulin by I mean, imagine if it was 20% that you'd be you're less likely to get low, less likely to see spikes, like it would be an overall health better when I

Tacee 53:46
started on the dash, they, they were my prescription was for one pot every two days, because it couldn't hold enough insulin. And now, I barely put in like 100 unit for three days. And usually I have insulin leftover.

Scott Benner 54:06
Yeah. That's crazy. So the algorithm didn't work for you. But now that we've had this whole conversation, why do you think?

Tacee 54:14
I think it's a couple of things. One, I think it that the algorithm naturally, is not as aggressive as I would like to be or as you know, somebody that is bold with no one would be and so where it's like, oh, yeah, you're you're cool. At 140. And I'm like, the one that that's, that's high. My Dexcom is that, like, high is any like, when I hit 135 I have an alarm and then like very high as 140. And so I think part of it is that it just wants people to be a little bit higher because of their safety or whatever. And I think also, it couldn't keep up with like my cycles.

Scott Benner 54:53
Oh, so you think it was having trouble with your periods? Yeah, yeah. And you You are see the other thing I was thinking is the as you're introducing the ozempic, it's also changing your insulin needs. And you're not telling the algorithm that there's no functional way for you to tell the algorithm Hey, I've taken an injectable now that it's gotten to, like less than my bubble bond changed my digestion and like, like, none of that can happen. Like, I wonder if I don't know. Like, I wonder if you don't get the ozempic to a maintenance level, like get it up to where there's stability and how much you're taking, and then reset the algorithm one more time and try it. That's my Wonder ants is like, I wonder if you could like if the changing of the ozempic wasn't changing your scenario so much. But we're not telling the algorithm that is changing. Does that make sense? No, that yeah, it doesn't know that. Right? And I mean, I get that your needs are higher, like when, like, before your period, or after? When do you say Right,

Tacee 56:03
right before right before it goes higher? Like I get higher, right before and then when I'm actually on it. I like dip super bad. Yeah.

Scott Benner 56:10
So you're like art and like artists got those like four days prior to the event that are difficult. And then four or five days before the event that are difficult, and then her needs go backwards during the during the event? I don't know why I call it the event, because I don't want to call it bleeding, or what and I don't know the right words. That's fading. Yeah, sure. That's a weird word for me to say. I mean, that is the technical parents are more comfortable with the event. But thank you.

Tacee 56:37
You're welcome. Glad to help.

Scott Benner 56:39
Do you have any other issues around your periods? You have PCOS? Do you have acne? Do you have stuff like that?

Tacee 56:47
I don't. Um, at one point, my endo asked if I possibly did have PCOS. That was like when I was early on diagnosed? I I don't think I do. But the only I think the only reason she was asking that was because of I had a very difficult time both pregnancies getting pregnant and because of the weight. But I don't think like from what I've researched and read I don't think that is true of me. I think they are like independence. situations.

Scott Benner 57:21
Okay. Okay, good. Yeah. I mean, I was just asking. That's all. All right. Casey, is there anything we haven't spoken about that we should have? By the way? You brought good, good story today. Thank you. Oh, you're welcome. Are you good? Yeah. The whole is epic twist. I was like, I felt like, I felt like it was the 80s. And I was watching Dallas and Jr. was like getting shot in the shower. Oh, my God, we've taken a turn,

Tacee 57:44
say really? dimension it earlier. And then

Unknown Speaker 57:48
I started having happen. Yeah.

Tacee 57:52
And then I saw that I heard I could I could mentally picture the wheels turning when I was like, oh, yeah, I'm only using five to six units. And I'm like, wait.

Scott Benner 58:01
Wow. So is there a way and so you're eating kind of low carb. See, I'm trying to figure out the algorithm for you. Because the algorithm because Omnipod fives not trying to keep you at 140? Right. So it doesn't have the settings, it's not able to hit you right with the settings. You shouldn't be one of the ad overnight. Like, I'm wondering if, like how you couldn't tell? Because if you're you What do you think your daily total insulin uses? I don't think think I think you know, actually, what is your daily. So

Tacee 58:30
like right now for the like My average day actually pulled up gluco, while you're taking my average for the past 90 days, is seven 19.7 units.

Scott Benner 58:42
So 20 units a day, but you only have five of it coming from basil. Because you are on ozempic fairly low carb, and you're good at bolusing for your meals.

Tacee 58:57
That's the it's 7.7 units for Basal and 12 units for Bolus. But the 12 units for Bolus is not accurate, because that thinks that that's everything. I'm boasting for meals. And that doesn't take into account correction corrections, right?

Scott Benner 59:13
So you're using 20. So so the 12 is boluses meal balls is plus corrections for 12.

Tacee 59:23
Let me go to let me go to Oh, no, that's even worse. I was like, let me go to two weeks and see if that's better. But that that those ratios are be the first time I really looked at it from this aspect. So yeah, if I go to two weeks, my average is 6.8 units per day and 15 point for basil and then 15.1 for Pre-Bolus.

Scott Benner 59:42
So my thought is and I don't know that you need to do anything you're doing really well. What's your one say?

Tacee 59:47
My last a Wednesday that I'd gotten me was 5.9 which is high. I prefer it to be lower.

Scott Benner 59:53
But yeah, I mean, there's a world where maybe you could get to two units. By the way. Nothing here on the Juicebox Podcast should be good. SideRed advice, medical or otherwise, always consult a physician to maybe you could get two units into your Basal out of your corrections. Okay, maybe that would help you there. Does that make sense? Yeah. So I'm not saying be 5050 Because that's what people say. But I'm saying if you're making corrections, and they're throughout the day, not just around meals, than they might not just be you missing meals, maybe it's just that your Basal is a little deficient. And I mean, seven units 7.7. Hold on, I have a calculator. It's built right into my machine, my computer thing. The lady so if your 7.7 a day divided by 24. I mean, your Basal is like point three. That doesn't seem right. Still. I mean, okay, your lower carb, okay, those epics there. But if you just added if you just took it to 10, I'm just using 10. Because it's round number. I mean, you really just be going to point four, one or point four, two. You know what I mean? Like so one point 4.45. Basil versus point three, five. Gets you those two units throughout the day? And? Yeah, I don't know. That's what I would try if I was you. Yeah. That's a shot. Are you ever disappointed? You didn't try looping?

Tacee 1:01:22
Yeah. You

Scott Benner 1:01:24
think you could? Yeah,

Tacee 1:01:25
I've actually been thinking about it about like, he can't go back to the dash so I can try Lupien?

Scott Benner 1:01:32
You might. Yeah, I don't know. Also, I don't know that you can't get out on the pod five to work for you either. Like I'm not sure. Like, they're all different. Like, on the pod five being newer now reminds me of when control IQ came out. And for a while people were like, this thing don't work. And I was like, what doesn't work, they're like control like you it doesn't work and blah, blah, he talked to him for a while and you see their settings were off a little bit. And they'd figure it out. Or like, there were a lot of like variability for like kids, for example, like my son plays soccer one day, and then he doesn't the next day, and, and I but I do get the idea to about Omnipod. Five is working off those last couple of days. And so if your last couple of days are, you know, right before your period, and then your needs drops significantly, I can see where it could struggle with that too. Because it's such a stark shift in between, in between those moments. So I mean, listen, you do you should do whatever works for you. million percent. You don't I mean, yeah,

Tacee 1:02:30
for now, I'm gonna stick with what I have. I would be willing to go back and try the Omnipod five again, but I'm waiting. I would wait until they link it with the G seven because I develop an allergy to the adhesive on the G six

Scott Benner 1:02:49
so I'm sorry to hear that G seven is great. Artists been using it for a while. Yeah.

Tacee 1:02:53
I've really been enjoying it. I haven't had I know some people complain about it. But I haven't had any problems. Every time I do a finger stick to check. It's always like, spot on. I haven't had it like be really awkward or had any problems. But yeah, like, the adhesion was so bad. I did all the things the skin tag the tag, like, and it was bad. I have scars. I'm sorry.

Scott Benner 1:03:19
Like,

Tacee 1:03:21
chemical burned my skin you can't win,

Scott Benner 1:03:23
right? Like they. The companies like forget Dexcom like the companies are like, well, people are like, Hey, I'm getting like, you know, adhesive allergy. And they Okay, well, we'll make it better. So it doesn't do that. So they like then people can see it falls off too easy. Oh, yeah. Yeah, we're sticking things to our body. It's not natural. We're doing our best here is like, I feel like if the companies could actually say what they were thinking, that's what they would say. Like we're trying. We're trying. Alone. It's a lot. Yeah, I'm sorry that happened. But I'm glad that g7 helped you. That's really terrific. It's so small and fantastic. And like, like right now Arden's g7 is expired. But we're in the 12 hour grace period. Yes. And she's still getting numbers. And all she's going to do is like, I'm gonna go talk to her after this. She'll put the new one on, leave it on for a couple of hours. Then when the other one expires, switch over and then the other one will be pre soaked and be working better when she turns it on.

Tacee 1:04:21
Yeah. Oh, yeah. I love being able to pre soak them. Oh, it's fantastic.

Scott Benner 1:04:24
It really is. So it's a wonderful step. Alright, tasty. It's my birthday. I'm gonna go to lunch. Happy birthday, thank you enjoy your lunch. I'm gonna hang out with my wife and my kids. My wife took the day off. And my son came home for a couple of days. He had a little break he was able to make in his new job. So we're all here. We're going to hang out today. Celebrate me being old, and then he's gonna fly home tomorrow. So

Tacee 1:04:52
that's wonderful. Family Time is truly the best. Very

Scott Benner 1:04:55
cool. All right, you did a great job. I really appreciate you sharing all this with me. Is there anything We didn't say that you have on your spreadsheet that you wanted to say. No, I

Tacee 1:05:04
think we covered everything. Very cool.

Scott Benner 1:05:06
I appreciate this very much. Can you hold on one second? Of course, thanks.

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